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Creativity and Parkinson’s History The Creativity and Parkinson’s Project, led by the Parkinson’s Disease Foundation (PDF), seeks to explore, support and encourage the therapeutic value of creativity in people living with Parkinson’s. Evidence suggests that creative activities — from painting to dancing, sculpting, singing and even exercise — may reduce, or even temporarily relieve symptoms associated with Parkinson’s. This can be truly liberating for people living daily with the physical limitations brought on by this debilitating disease. Launched at the first World Parkinson Congress (WPC) in 2006, the Creativity and Parkinson’s Project included a hugely popular exhibition that featured the artwork of 186 people with Parkinson’s disease from 13 different countries. This exhibition included art in a variety of media, including among others, painting, poetry, sculpting, dancing, jewelry making and photography.

To ensure that the value of creativity continued to be explored by the Parkinson’s community, PDF launched in 2006 an online gallery featuring the works of the artists included at the first WPC. Today, the gallery has grown to include the artwork of nearly 300 artists living with Parkinson’s. Their inspirational works can be found at www.pdf.org/en/creativity. As an extension of this initiative, PDF launched in 2009 the Parkinson’s Quilt Project. The Quilt Project gave people all over the world the chance to express their support of people living with Parkinson’s, and to honor their loved ones who are no longer living, by creating a personalized quilt panel.

My quilt panel ... was meant to be a symbol of hope for the futures of people with Parkinson's. Joanna Steichen

This book is dedicated as a memorial to Joanna Steichen, who passed away on July 25, 2010. She was a passionate supporter of the Parkinson’s Quilt Project and believer in the therapeutic value of creativity for people living with Parkinson’s.

Quilt Planning Committee Jean Burns | Sun Lakes, AZ Kay Mixson Jenkins | Springfield, GA Charlene “Pokie” Pryor | Vandalia, IL

Joanna Steichen | New York, NY Linda Webb | Williams, AZ Peggy Willocks | Johnson City, TN

PDF Staff Matthew DePace Elizabeth Pollard Ivy Rook

Volunteer Beth Murphy

Advisors Ann Loeb Sharon Stone


September 2010 Dear Friends: It gives me great pleasure to introduce to you to the first Parkinson’s Quilt, a project developed by the Parkinson’s Disease Foundation (PDF) to help focus world attention on the nearly one million people in the US — and seven to 10 million people worldwide — living with Parkinson's disease (PD). In particular, I would like to recognize the more than 600 individuals — people living with PD, care partners, family members, friends and others — who created the panels that comprise the quilt. These individuals illustrate the truly global nature of the quilt, and of Parkinson’s disease; they hail from 14 countries, including 46 of the 50 US states, and four of Canada’s 13 provinces. Each quilt panel has a story to tell, whether it was created by a person with Parkinson’s about his or her experience, or by a care partner, family member or friend, in honor of their loved one living with PD. As you browse through each panel, we hope you are as inspired and touched by these stories as we are. We at PDF must also express our gratitude to those whose generosity and dedication helped to make the quilt a reality. Among these are our planning committee members, volunteers, sponsors and donors.

We are pleased to let you know that the Parkinson’s Quilt, after its first display at the 2nd World Parkinson Congress in Glasgow, Scotland, UK, will become available to you and others around the globe to display in your own communities. With this in mind, lastly, we thank you, our quilt viewers, for your interest in the quilt and its many contributors. May the quilt strengthen your commitment to find a cure for Parkinson’s. After all, the quilt aims to raise awareness of the impact that Parkinson’s has on people living with and affected by it, and to illustrate our continued urgency to find a cure. We hope that by sharing the quilt — not only today in Scotland, but also in coming days with you, so that you may share it with your friends, family and neighbors around the globe — that, together, we will succeed in that mission. Sincerely yours,

Robin Anthony Elliott Executive Director

How to Use This Book This book features 39 quilt blocks that make up the Parkinson’s Quilt Project. Each block is made up of 16 panels. The names of the individuals and groups /organizations that created each panel are listed in alphabetical order in the index at the end of this book. To find an individual or group/organization’s quilt, search by the first letter of the last name of

the individual, or the first letter of the group/organization. On each quilt block page, the names of the quilters are listed next to each block. The names are listed in groups of four, corresponding to the four rows of panels in each block, with the first name of each group corresponding to the far left panel.


Park N Sons martini bar & lounge (always shaken, never stirred) Anyone who knows this disease is well aware of the fact that during its relentless progression, you’ve got to find a way to take a little something back to try to help yourself keep things in perspective. Symptomatic since I was 27, I have to look forward to living most of my life with this unwelcomed visitor, unless there is a cure found soon.

I am an artist and I paint in my Virginia studio almost every day. I do very detailed work. Among my initial fears was that I'd lose control of my steady hand. I often joke with friends that if that happens, I'll just become an abstract expressionist.

My panel represents one of the lighthearted approaches I’ve taken towards dealing with PD’s obstacles. This thinking, combined with tons of love and support from my family and friends, helps me to get through it all. Within the faux stained glass in my panel, I’ve listed people, places, and things that have touched my life at some point.

The cure will come; probably too late for me, but we must work toward that goal by raising funds and consciousness. The Parkinson's Quilt Project is a great way to do that and I am happy that I am able to contribute.

Larry Schneider Jr. Block 1

Although I have had Parkinson’s disease for over eight years now, I am still able to spend time in and enjoy my small garden. With this in mind, my panel depicts a simple garden theme. A secondary theme of the quilt panel is “every cloud has a silver lining.” The “cloud” of Parkinson’s disease has introduced me to my “silver lining.” This came about when I read in our local newspaper about a group of people with Parkinson’s who got together once a week for an art session under the guidance of Anne Atkin, herself a person with Parkinson’s. This session has become my “silver lining” and I spend many hours every week painting and drawing. I really enjoy creating colorful images with pastels, pencils, acrylic paints, etc., and it replaces negative thoughts with pleasant ones.

Heather Eager Block 1

I am 73 years old and was diagnosed with PD 18 months ago. My first reaction was despair, but after a few months I realized I was controlling it with medication, although it is progressing in small ways.

Block 2

I was diagnosed with Parkinson’s almost six years ago at the age of 44. As a single, independent career woman, the news was devastating to me. It took a while, but I eventually learned that this is a life sentence, not a death sentence. I still live a full life. I work full-time as a designer in the apparel industry and I have a full social life, even more so now that I have met a whole new group of friends through my support group and volunteer work. My real passion is painting, and I have begun showing my work professionally in the last two years. This panel comes from lessons experienced in my journey with this disease. These lessons are gifts, and I chose a bouquet of tulips as the symbol to represent them. Living with PD has opened me up to receiving spiritual gifts, something I would have avoided or overlooked before. This disease has shown me patience, but not merely in dealing with a slower-paced life. I have been given the gift of patience with others, something I could never have learned without first experiencing my own physical and mental struggles. The other gift is charity. Forgiveness and understanding now occupy a once empty corner of my heart, and have given me a much greater capacity and desire to help others in any way I can. For these gifts I am grateful. Beverly Lavender

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Alan Rubin

Block 3

Personal Statements


Block 1

Linda Feinberg Wilmette, IL, USA

Susan Murray Voorhees, NJ, USA

Judi Jecmen Jefferson City, MO, USA

Duk Kyung Cho Seoul, SOUTH KOREA

Jin Kyoung Choae Seoul, SOUTH KOREA

Barbara Feinberg Wilmette, IL, USA

Sharon Standish Marysville, WA, USA

Lisa Foley Edmond, OK, USA

Ans Muller & Jane Gray Vancouver, BC, CANADA

Sharon Standish Marysville, WA, USA

Lois Schneider Wilmette, IL, USA

Heather Eager Berwick, VIC, AUSTRALIA

Larry Schneider Jr. Gibbsboro, NJ, USA

Judi Jecmen Jefferson City, MO, USA

Mary Huizinga San Francisco, CA, USA

Lenore Laverty Morden, MB, CANADA

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Block 2

Kim Vitcenda Cade Viroqua, WI, USA

Patricia Bissell Parrish, FL, USA

Greg Gatesy Gaylord, MI, USA

Alan Rubin Delaplane, VA, USA

Parkinson’s UK-Newcastle Branch Newcastle, UNITED KINGDOM

Wanda Milton South Pasadena, CA, USA

Alison Paolini Paradise, CA, USA

Bismarck Parkinson's Support Group Bismarck, ND, USA

Cheryl Majeske Quinton, VA, USA

Alison Paolini Paradise, CA, USA

Wanda Milton South Pasadena, CA, USA

Annelies Massey Duncan, BC, CANADA

Lynette Jacobs Prescott, AZ, USA

Eric Smith Glen Arm, MD, USA

Team Parkinson Kingston, NJ, USA

Edith Schwartz Corona, NY, USA

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Block 3

Anne Atkin Hallam, VIC, AUSTRALIA

Parkinson's Disease Foundation New York, NY, USA

Diana Smyser Surprise, AZ, USA

Beverly Lavender Toronto, ON, CANADA

Patricia Sherrick Delphos, OH, USA

Beverly Lavender Toronto, ON, CANADA

Patricia Sherrick Delphos, OH, USA

Parkinson's Disease Foundation New York, NY, USA

Patricia Yarnold Rochester Hills, MI, USA

Patricia Sherrick Delphos, OH, USA

Beverly Lavender Toronto, ON, CANADA

Joanna Steichen New York, NY, USA

Pamela Moulton Port St. Lucie, FL, USA

Beverly Lavender Toronto, ON, CANADA

Charlene Snyder Glen Mills, PA, USA

Patricia Sherrick Delphos, OH, USA

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Diagnosed in 2007 at age 47, I decided that while some things might be more challenging now, I would try to spend more time enjoying creative pursuits. I find it brings peace when I am feeling anxious and tremendous satisfaction! When I heard about the giant Quilt Project, I felt that this would be a wonderful way to honor our Support Group: to say thank you to our families and for the close friendships we have made within our group. Vancouver Broadway Support Group may not be able to go to Glasgow, but we would like to be there in spirit through our collage! We hope Panel 2083 will be bound to the giant quilt, just as we are bound here by friendship. Going to Glasgow this fall? Look for our panel. It was made with love.

Block 6

My panel began as a general design for the Parkinson’s Quilt. It was meant to be a symbol of hope for the futures of people with Parkinson's. And it still is that. But as it grew, the theme of music took over. Acrobats became dancers; a piano and sheets of music appeared. I have always loved and needed music: piano, opera, folk, liturgical, Bach, Beethoven, the list never ends. But in the last ten years of coping with late onset Parkinson's, I've discovered how important music can be for our daily functioning. Strong rhythms improve balance and movement, singing for breath and voice, melody for joy or sorrow, and chords or harmony for the power of companionship. The panel then became part of a quilt block (block 4) dedicated to the power of music for PD. Music for PD! PD for music!

Block 4

When I first told my darling family that I had Parkinson's, the news was met with hugs, lots of love, and questions. As time went by, I began to realize that many of the questions were actually musings by each child and grandchild about not only the quality of my life, but about their lives also. When the Quilt Project was offered as a way to spread the message about Parkinson's and a way to express ideas about this disease, I immediately thought about my family's questions. Based on Mother Theresa's own thoughts about life, I asked members of my family to choose one of the sentiments that most closely reflected what life meant to them. This panel represents their answers, and I feel it reflects the joy and hope that ultimately colors all of our days.

Susan Allan

Joanna Steichen

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Helen Gerry Block 6

My husband, Vernon McMurtry, suffers from Parkinson’s disease. The kaleidoscopes in this panel represent the uncertainty, anxiety, and fear that this diagnosis engenders. As the disease progresses, there are additional problems to cope with and new challenges to be met by both patient and caregiver. The restful blues and greens incorporated in the panel represent the eventual acceptance of the disease as part of our lives. They also represent our determination to enjoy every day to the fullest and to remain ever hopeful that a cure will be found very, very soon. Creativity helps us remain positive and happy people.

Kathleen McMurtry Block 6

Personal Statements


Block 4

Springfield, GA, USA

Peggy Willocks Johnson City, TN, USA

Sharon Stone Morristown, NJ, USA

Linda Webb Williams, AZ, USA

Larry Schneider Jr. Gibbsboro, NJ, USA

Joanna Steichen New York, NY, USA

Davanna Saari Lanesville, IN, USA

Cynthia Craven

Parkinson’s Disease Foundation’s Music Quilt

Kay Mixson Jenkins

Asheboro, NC, USA

Aiko Kawabe Flagstaff, AZ, USA

Audrey Gray Sanner Decatur, IL, USA

Miriam Pizarro Miami, FL, USA

Nancy Wood South Deerfield, MA, USA

Parkies Jammin Smithland, KY, USA

Elena Tuero Freehold, NJ, USA

Club CREATE- Struthers PD Center Golden Valley, MN, USA

Kim Vitcenda Cade Viroqua, WI, USA

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Block 5

Eleanore Hull Port Jefferson, NY, USA

Louise Colalillo Duluth, MN, USA

Lois Cole Des Moines, IA, USA

Janice Catton Chatham, ON, CANADA

Carol Bersan Manchaca, TX, USA

Eleanore Hull Port Jefferson, NY, USA

Sandra Zander King Island, TAS, AUSTRALIA

Katherine for PCC Neurowriters Philadelphia, PA, USA

Katherine for PCC Neurowriters Philadelphia, PA, USA

Lisa Longacher Castle Rock, CO, USA

Eleanore Hull Port Jefferson, NY, USA

Carol Cassidy Centennial, CO, USA

Cynthia Ho Dudley, West Midlands, UNITED KINGDOM

Patricia Cole Elmira, NY, USA

Patricia Sherrick Delphos, OH, USA

Eleanore Hull Port Jefferson, NY, USA

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Block 6

Sharon Stark Wellston (Hoxeyville), MI, USA

Esther Bass Bedford, MA, USA

Patricia Morris Irvington, VA, USA

Nancy Rodriquenz Westminster, MA, USA

Linda Spencer Salisbury, NC, USA

Kathleen McMurtry Betty's Bay, Western Cape, SOUTH AFRICA

Mary E. Booth Urbandale, IA, USA

Caralyn Turner Loveland, CO, USA

Mona Ampudia La Habra, CA, USA

Helen Gerry Polson, MT, USA

Gail Poynter Ramona, CA, USA

Audrey Gray Sanner Decatur, IL, USA

Susan Allan Maple Ridge, BC, CANADA

Sheryl Allen San Jose, CA, USA

Judie Renfrow Tucson, AZ, USA

Pamela Smith Murfreesboro, TN, USA

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I have a dream that in my lifetime there will be a cure for Parkinson's. I had a dream about my quilt panel. It was all puzzle pieces. The pieces are jumbled at the top of the panel and at the bottom, some puzzle pieces are fitting together, while some are still trying to find their place. All it will take is one puzzle piece to fit just right and we will have a breakthrough for a cure.

Over the course of his treatment,Tom has been blessed with many caring people whose names are embroidered on the edges of the square. And, of course, there's me, his #1 supporter. Because of this group, Tom has been given the opportunity to undergo deep brain stimulation surgery this coming May. This is just the beginning of finding a cure for this disease. It will take the courage of many, but together we will solve this puzzle.

I am an artist and a quilter. I have Parkinson’s. I also have creativity and that keeps me active and alive in mind, body, and spirit. A cure for Parkinson’s is my dream. I pray every day for that one piece of the puzzle that will make the difference.

Lynne Stefanetti

• Measure twice, cut once. • Take care of your family and your home. • Feed the birds. • Be modest. (Few people know that dad worked with Travelers Insurance Company, Friedan Computers, and Western Union to create the beginnings of what we now know as the Internet.) • Ice cream is better from the ice cream truck. • Save everything — you never know when you'll need it. (Not a single piece of fabric was purchased for this project!) • Never walk if you can drive a tractor. • Any day fishing or boating is a good day. • Wash the windshield before you get on the highway, and always wave good-bye.

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Block 7

Parkinson's had a profound effect on my father, George Lukens. The center of the panel is Dad sailing his restored dinghy on Cape Cod. The panel remembers dad and all his lessons:

Pat Lukens Block 7

My panel is dedicated to my husband, Tom. Since the onset of his disease six years ago, we have been faced with many different challenges. This is best illustrated by my choice of the game of Scrabble. You have to figure things out to the best of your ability with what you are given. Sometimes that's an easy task and sometimes not.

Kathleen Diez Block 9

Three months before retiring at the age of 60, I was diagnosed with Parkinson’s disease. I knew almost nothing about PD. After researching, reading, listening, and interacting with others with PD, I am still “puzzled” by the many ways PD changes the lives of millions, and we still do not have all the pieces of the puzzle that will lead to a cure. Determined to participate in this project, I had a design idea, a pattern, a fabric selected, a 221 Featherweight sewing machine (a quilters dream, I’m told) and NO QUILTING SKILLS! However, I knew someone who could instruct me!! With the help of my talented sister-in-law, Betty Connolly, the “Parkinson’s Puzzle” is my contribution to the PD Quilt Project. Black pieces represent the “unknown” while colored/design pieces represent the progress made as research continues to put the pieces together to find a cure.

Gayla Doughty Block 8

Personal Statements


Block 7

Rebecca Breedlove Kingston Springs, TN, USA

Michelle Jacobowitz Canton, GA, USA

Mindy Kirsten Andersen Ellensburg, WA, USA

Sheryl Wilson Antioch, CA, USA

Lynne Stefanetti Paradise, CA, USA

Karen Sampsell Oak Ridge, TN, USA

Pat Lukens Marlborough, MA, USA

June D'Anieri Westerville, OH, USA

Christine Rhea Sevierville, TN, USA

Patricia Huffman Boone, NC, USA

Katherine Arehart Bunker Hill, WV, USA

Cheryl Rykken Fremont, WI, USA

Linda Macke Camano Island, WA, USA

Yvonne Blake Katoomba, NSW, AUSTRALIA

Paris Harrison Greenville, SC, USA

Ila Patlogan Flossmoor, IL, USA

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Block 8

Barbara Backus Johnson, VT, USA

Patricia Healy Cedar Rapids, IA, USA

Mary Hjalmarson Cardiff By the Sea, CA, USA

Rachel Brumer Seattle, WA, USA

Elizabeth Anne Traverse Pearland, TX, USA

Gayla Doughty Hurricane, WV, USA

Irene Novichihin Mount Angel, OR, USA

Suzanne Goldman Sebring, FL, USA

Bethany Convent St. Paul, MN, USA

Linda Habenstreit Springfield, VA, USA

Carole and Jen Hatke Itasca, IL, USA

Kathleen Broaddus Moweaqua, IL, USA

Georgia Rancourt Fairfield, ME, USA

Barbara Dill Tacoma, WA, USA

Judi Sechter Merrick, NY, USA

Maralyn Claycomb Scottsdale, AZ, USA

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Block 9

Laura Sanger Houston, TX, USA

Linda Armstrong Aurora, IN, USA

Cindy Edison Sturgis, SD, USA

Elena Tuero Freehold, NJ, USA

Jean Hamilton Bellingham, WA, USA

Eleanor Flowers' Children Independence, MO, USA

Rebecca Peyton Manassas Park, VA, USA

Gracia Clark Bloomington, IN, USA

Miriam Pizarro Miami, FL, USA

Karen DeGraaf Elizabeth, IN, USA

Lynda Robson Richmond, BC, CANADA

Valley Golden Living Center Saint Marys, OH, USA

Janice Wiseman Kareela, AUSTRALIA

Melanie Votaw Brooklyn, NY, USA

Maria L. De Leon, M.D. Nacogdoches, TX, USA

Kathleen Diez Aurora, CO, USA

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My husband Augie D'Alonzo was diagnosed with Parkinson's over thirteen years ago. He is 68 years old, and we have been married for the last 46 years. Calling him the "Mighty Oak" is a perfect description. He has never let this disease take over him physically and mentally, and has fought to live a normal life. With the support of me, our five sons, their wives, our seven grand-children, and our faith, we are helping him live a full and active life. He is an inspiration to us all, especially our daughter-in-law, Patti, who had breast cancer. He showed her how to face adversity and fight it with a confident attitude. The branches of Augie's oak tree might bend, but they won't break. I designed this quilt panel with these thoughts in mind, and I hope the viewer sees that with a positive mind and support of family that you can fight Parkinson's.

The Quilt program is a reflection in terms of folk art, of the kaleidoscope of experiences that came with Parkinson’s disease. There is the immediate shock of one’s physical shortcomings, followed by adaptation to a new form of life, necessitated by the change. Prominent in my mind is the re-learning of tying a knot, or wearing a tie, doing up one’s shoelaces, buttoning one’s clothes, eating with only a spoon, and above all a new exercise regime. It can be done!

Sleem Majidulla Block 12

Rita D'Alonzo Block 10

This panel is a tribute to my dad. Accepting that Parkinson’s was now a permanent part of his life, our Abu (Dad) Haroon decided to befriend his disease rather than view it as an enemy. Fondly naming it “Pinky D,” he founded the Pakistan Parkinson’s Society — a small group to raise awareness and provide support for Parkinson’s patients in Pakistan. He has made his pink shirt a signature statement for seminars, workshops, and corporate events. The pink shirt represents confidence and dedication to his cause with the hope and inspiration he wants to see in all patients, families, and friends.

Shahzadi Shoaib Block 12

This photograph is of one of my oil paintings and a written reflection that shows how art helps me to express and to cope with the emotional isolation caused by PD. My family and friends have no idea what I face on a daily basis. I hide my struggles as much as possible, in order to enjoy being a friend — just a friend — and not “a friend with PD.” As a result, I am happier when with people, but lonelier when alone. I took the advice of a wise friend who told me to learn to be happy with my own company. I grew less dependent on TV and movies to drown out my loneliness, and started painting again, adjusting my style to accommodate lost fine motor skills. The result is a body of work far more compelling than my pre-PD paintings.

Marie Louise Hagen

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Block 10

Personal Statements


Block 10

Margaret Magic Bellingham, WA, USA

Judith Hendelman Forest Hills, NY, USA

Karen Dell Elmhurst, IL, USA

Mildred Cushman Houston, TX, USA

Sheila Bopp Maineville, OH, USA

Niska Montreal, QC, CANADA

Niska Montreal, QC, CANADA

Carolyn Weimer Cleveland, OH, USA

Shirley Cline Christiansburg, VA, USA

Niska Montreal, QC, CANADA

Niska Montreal, QC, CANADA

Marie Louise Hagen Washington, DC, USA

Heather Urquhart San Diego, CA, USA

Susan Page Graceville, AUSTRALIA

Linda Wittig Ambridge, PA, USA

Rita D'Alonzo Port Washington, NY, USA

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Block 11

Houston, TX, USA

Charlene Victor Houston, TX, USA

Aubrey Calvin Houston, TX, USA

Anna Petrites Houston, TX, USA

Robert Curtis Houston, TX, USA

Meg Lauck Houston, TX, USA

Clarita Brown Houston, TX, USA

Carol Fry Houston, TX, USA

Michael Driscoll Houston, TX, USA

Mike Churchman Galveston, TX, USA

Myrna Rodman Houston, TX, USA

Ellis Freitag Houston, TX, USA

Paquita DeLeon Houston, TX, USA

Warren Franz Houston, TX, USA

Brenda Lary Houston, TX, USA

Mary Weyand Houston, TX, USA

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Houston Area Parkinson’s Society (HAPS) Quilt #1

Dorothy Wong


Block 12

Karachi, PAKISTAN

Shahzadi Shoaib Karachi, PAKISTAN

Rayyan Basheer Karachi, PAKISTAN

Raniyah Basheer Karachi, PAKISTAN

Talat Hashmi Karachi, PAKISTAN

Pakistan Parkinson’s Society Quilt

GlaxoSmithKline Staff

GlaxoSmithKline Staff Karachi, PAKISTAN

Samina Qureshi Karachi, PAKISTAN

Shahla Shareef Karachi, PAKISTAN

Tashi Shaikh Karachi, PAKISTAN

Shahzadi Shoaib Karachi, PAKISTAN

GlaxoSmithKline Staff Karachi, PAKISTAN

Salika Anwer Karachi, PAKISTAN

Nilofar-Nighat Zeba Karachi, PAKISTAN

Ayesha Samad Karachi, PAKISTAN

Sleem Majidulla Karachi, PAKISTAN

GlaxoSmithKline Staff Karachi, PAKISTAN

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I created this block to symbolize things that have been important in my life. Some of them changed with my diagnosis of Parkinson’s as my physical abilities did. Some, like family and friends, are central to my life regardless. Now I find release and comfort in creating — whether with quilts, music, art or poetry. I feel that as long as I can find beauty in the world and a way to share it then I have lived well; life may change because of Parkinson’s but it goes on and we keep going, too, just at a different pace! One day there will be a cure.

“Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it is the only thing that ever has.” The PD Tulip initiative was grassroots and look where we are today! One person CAN make a difference.

Linda Webb Block 14

Besides being a work of art, a quilt is a jigsaw puzzle of memories. A flannel square from a baby's blanket, a piece of corduroy from a grandson's outgrown jacket, and a ribbon of taffeta from a granddaughter's prom dress all blend together into a rainbow of color. Each special event brings smiles to our faces and warmth to our hearts. For those with Parkinson's disease, ordinary events become precious. We remember friends and family around the world who have made our lives special, in spite of the challenges we face. The mountains in my panel represent these challenges, and the leaping stag symbolizes the spirit and determination found in our hearts. My contribution to this quilt was made possible by the creativity and cooperation of others. Many thanks to Joanne Forkey whose quilting talent saved the day!

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Lois Ballard Block 13

This square represents me and my dreams. I believe in the grassroots movement where great things can be accomplished by taking small steps. The Margaret Mead quote is one that I live by:

Jean Burns Block 14

The Things I Have Loved and Lost to Parkinson’s Disease I have always loved high heeled shoes. I think that they “finish” an outfit, any outfit. In fact, you could be wearing a burlap bag tied in the middle with a piece of jute string, but if you wore the right pair of high heeled boots — say leopard-skinned over the knee Stuart Weitzmans … well, honey, you looked high-maintenance! Well, Parkinson’s disease took all that away from me. I always had trouble walking and chewing gum at the same time — but now forget it. Balance is out the window. But, oh, those shoes! They gave me such joy! And you know, they still do. The lips at the lower right are me kissing them goodbye for my feet but thanking them for their contribution to me. They are my muse in the art of living with PD — with flair.

Christina LaGana Block 15

Personal Statements


Block 13

Plattsburgh, NY, USA

Janet Booth Plattsburgh, NY, USA

Mary Lou Beauharnois Plattsburgh, NY, USA

Patricia Wood Plattsburgh, NY, USA

Helga Petropoulos Cadyville, NY, USA

Judy Russell Plattsburgh, NY, USA

Lora Barshow Plattsburgh, NY, USA

Ladies of the Lake Quilters Plattsburgh, NY, USA

Plattsburgh, New York Parkinson’s Awareness Quilt

Barbara Lichtig

Kate Delsignore Plattsburgh, NY, USA

Carol Solari-Ruscoe Peru, NY, USA

Niki Gemmill Chazy, NY, USA

Carol Crowningshield Port Kent, NY, USA

Barbara Wagner Plattsburgh, NY, USA

Mary Gagnier Plattsburgh, NY, USA

Lois Ballard Peru, NY, USA

John Russell Plattsburgh, NY, USA

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Block 14

Williams, AZ, USA

Marcia Wiener Green Valley, AZ, USA

Quilt Project Committee New York, NY, USA

Linda Webb Williams, AZ, USA

Martha Ober Bath, NY, USA

Jean Burns Sun Lakes, AZ, USA

Jean Burns Sun Lakes, AZ, USA

LSVT Global Tucson, AZ, USA

Linda Webb Williams, AZ, USA

PDPlan4Life Sun Lakes, AZ, USA

Jean Burns Sun Lakes, AZ, USA

Shirley & Becky Farley Tucson, AZ, USA

Sharon Kha Tucson, AZ, USA

Linda Webb Williams, AZ, USA

Wendy Glass Austin, TX, USA

Linda Webb Williams, AZ, USA

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Arizona Parkinson’s Awareness Quilt

Flagstaff Support Group


Block 15

Christine LaGana Columbia, MD, USA

Meryl Lees Cowra, NSW, AUSTRALIA

Danish PD Association Copenhagen K, DENMARK

Danish PD Association Copenhagen K, DENMARK

Danish PD Association Copenhagen K, DENMARK

Penny Teem Williford, AR, USA

Karen Lees Cowra, NSW, AUSTRALIA

Danish PD Association Copenhagen K, DENMARK

Marion Dolan Buffalo, NY, USA

Michele Lee Baker Ranburne, AL, USA

Diane M. Campion Whitefish Bay, WI, USA

Lorna White Dubbo, NSW, AUSTRALIA

Michele Lee Baker Ranburne, AL, USA

Diane M. Campion Whitefish Bay, WI, USA

Jacqueline Michal Barzely Kibbutz Revivim, ISRAEL

Christine LaGana Columbia, MD, USA

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My quilt panel is in memory of my Dad, Howard L. Reiter. We found out Dad had Parkinson's in 1993. He and Mom did pretty well while taking care of one another, but then we found out Mom had bladder cancer. Mom died 17 months later. I took care of Dad for seven years. It is the hardest job I have ever had but I would do it again in a heartbeat.

I spent much time thinking through various ideas, with many changes of mind. In the end, I chose a very peaceful background evoking “nature,” “serenity,” and “tranquility.” To complete the theme, an appliqué of three quilted leaves was added symbolizing springtime, hope and rebirth. Elly Herman

Catherine Reiter

Block 16

Our quilt panel was made in honor of patients, caregivers, doctors, nurses, chemists and pharmacists around the world who are living proof that there is hope in combating this disease called Parkinson's. With our panel design we want people to know that the state of Texas, our town of Nacogdoches, and our support group are 100 percent behind all the organizations who are working diligently to find new medications and new treatments to provide a better life for Parkinson’s patients. The tulip is not only a beautiful flower — it is strong, it withstands the elements, and though lying dormant for a season, it always returns more beautiful and stronger than ever. We dedicate our panel to Parkinson’s "tulips" everywhere. Texas is called The Lone Star State. We show this on the panel, but also state the opposite for anyone coping with Parkinson's disease.

YOU ARE NOT ALONE!

Nacogdoches PD Support Group Block 17

In spite of many changes that PD has brought into my life, quilting still has the ability to bring me to a quiet place of creative tranquility. It is that feeling of hope I wish to share with others. It is important to define myself as to what I can do, rather than spend time being troubled over what I have lost. Quilting helps to supply that need, and keeps me feeling alive and useful in the face of the disease.

The three segments represent the things I think of when I think of Dad. He was a chef for 60+ years. After he “retired,” he started sharing his cooking talents with his students at the local college. Family meant a great deal to Dad. He treasured the babysitting time after school with his grandson, who is now 30. We often wondered who was taking care of whom. Dad's military career was something he was very proud of, serving five years in Asia during WWII.

Submitting this quilt panel as one of many, makes me realize how glad I am to be sharing in the PD Quilt project.

Block 18

Here is my quilt square, made with love and care for all those afflicted with this hideous disease. Perhaps our expressions on fabric will allow others to see, to heal, and to understand what PD is. My quilt square is not perfect, but neither is life! If the edges of the yellow fabric are not straight, or if the black fabric is not equal, it’s no big deal. I am not a professional quilter but I did my best; this is my work. In this quilt are pieces of my skin suit of my inline team as well as photos of the race I put on every year for PDF. Why a quilt square? Simple! With words, through threads and fabric we can express to the world our thoughts and feelings of how Parkinson's disease affects us all. I'm an inline skater. Skating, racing is my passion in life, expressed by putting on a skate race with net proceeds donated to PDF. My brother was diagnosed eight years ago and his life has changed in many ways since then. Putting on the skate race is how I'm helping to find a cure. My name is Audrey Winthrop of racebrake.com. I'm the team captain, inline skater racer of the Beach Bladers Inline Skate Team, Sunset Beach, CA, as well as the race director of the Parkinson's Open Inline skate race at El Dorado Park in Long Beach, CA.

Audrey Winthrop

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Block 17

Personal Statements


Block 16

Sue Mangiapane Encinitas, CA, USA

Donna Cahalane Anchorage, AK, USA

Arlene Brodsky Montauk, NY, USA

Oxford PD Support Group Oxford, OH, USA

Michelle Jacobowitz Canton, GA, USA

Kathleen Hyland Fritz Honey Brook, PA, USA

Leanne Holveck Newark, DE, USA

Julia Huestis Lowell, MA, USA

Lydia Shaternik Montauk, NY, USA

Marilyn Moll Hudson, FL, USA

Chyleen Pauesick Kansas City, KS, USA

Jen, Lauren & Dottie Keene Mechanicsburg, PA, USA

Lynn Bennett Palm Bay, FL, USA

Catherine Reiter Altoona, WI, USA

Michael & Cathy Collins Halfmoon Bay, BC, CANADA

Laurence Greenfield Northfield, IL, USA

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Block 17

Karen Smith Ridgecrest, CA, USA

Jeanne Armstrong & Jeannine Shade State College, PA, USA

Gail Pfeiffer Sparks, NV, USA

Judith Jackson Frostproof, FL, USA

Marilyn Van Lenten West Chester, PA, USA

Diane Durkee Naples, FL, USA

Arthur & Patricia Bierle Valley Center, CA, USA

Nacogdoches PD Support Group Nacogdoches, TX, USA

Davis Phinney Foundation Boulder, CO, USA

M.F. Kane Tucson, AZ, USA

Joan Engel Westbury, NY, USA

Marlene Lish Westerville, OH, USA

Laurie Brown Menlo Park, CA, USA

William Holman Jeffersonville, IN, USA

Audrey Winthrop Sunset Beach, CA, USA

Columbia PD Support Group Columbia, SC, USA

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Block 18

Marian Licko Elgin, IL, USA

Barbara Ford Stevensville, MI, USA

Elly Herman Sharon, MA, USA

Berrien County Support Group Stevensville, MI, USA

Colleen Brady Charles Town, WV, USA

Stacey Mellus-Whiting Woodside, NY, USA

Nicky Blakeney Taylorsville, MS, USA

Linda Kammann Shelby Township, MI, USA

Sandy Laipply Bucyrus, OH, USA

Megan Layman Martinsburg, WV, USA

Sheryl Boyd Elyria, OH, USA

Joyce Fisher Harpers Ferry, WV, USA

Yvonne Kozlowski Valparaiso, IN, USA

Carol Halpern La Grange, IL, USA

NJ Chapter APDA New Brunswick, NJ, USA

Mary Lou Palmer Waverly, NY, USA

25


Paisley prints Denim Flannel Many different types of fabrics and prints joined together, as are many hearts in a fervent wish to find a cure for Parkinson’s. Through the Parkinson’s Quilt Project, hands across the world weave their magic to commemorate loved ones suffering from this disease.

Vince was diagnosed with Parkinson's disease in 2002. In designing my panel, I wanted to convey our hopes that with Parkinson's disease research we will win the fight against this insidious disease. The dictionary refers to HOPE as "to desire with expectation of fulfillment." A RAINBOW is referred to as an "illusion." We believe that with Parkinson's disease research our RAINBOW will not be an illusion but rather a reality. Many thanks go to my sister Jean and niece Laura for their support in creating my panel.

Beth Murphy

Pray for those afflicted

Block 19

Donate your time and talent Find a cure

Jean Graffius Block 19

My quilt panel is in honor my husband and soul mate,Ted, who was diagnosed with Parkinson’s disease in 1999. He has never given up and works very hard to maintain his health and positive outlook. We have been through endless doctor visits, physical therapy, medicine changes and disappointments. We have discovered that endless is not the same as hopeless. Keeping a positive outlook is essential. Ted has a "never give up" attitude which has carried him through the day-to-day challenges of living with Parkinson's disease. He is my rock. Our family is very supportive and accepts that we live day-by-day. We are very blessed. We have good friends, a wonderful, understanding family, and the spiritual foundation that we draw on in times of disappointment and pain. What else could you ask for? A CURE FOR PARKINSON’S DISEASE.

Evelyn King Block 20

Our brother, Bert, was diagnosed with Parkinson’s in 2005. In typical Bert fashion, he’s chosen to ignore the disease as much as possible. Being a scientist, he has volunteered for research projects, feeling that if he can help doctors develop treatments or find a cure, he will. I remember him telling us that he had volunteered for a study of depression in Parkinson’s patients. He was turned down; he just didn’t meet the criteria for the study. He had Parkinson’s, but he wasn’t depressed! Bert attended public school In Rhode Island, graduated from Dennison University and received his doctorate in geology from Johns Hopkins University. Our square shows Bert engaged in the profession that he loves so much, and which has taken him all over the world. He is surrounded and supported by his wife and children and some of the places and activities that he enjoys so much. It was embroidered by his siblings: Kathy, Becca, Ann and Woody.

Bert Swan’s Siblings Block 21

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Personal Statements


Block 19

Christine Marte Cypress, TX, USA

Rosemary Runyan Elgin, IL, USA

Marguerite Pycha Chicago, IL, USA

Melinda Rutledge Hoover, AL, USA

Club CREATE- Struthers PD Center Golden Valley, MN, USA

The Stewart Family Mount Airy, MD, USA

Carol Moore Fairbanks, AK, USA

Gary Crutchfield South Boston, VA, USA

Jo Ann Van Kessel Columbia, MD, USA

Beth Murphy New York, NY, USA

Barbara Alvey Cloudcroft, NM, USA

Issy Moskowitz Atlanta, GA, USA

PD Fdn. of the Heartland Leawood, KS, USA

Louise Kuklis New Rochelle, NY, USA

Debbie Murphy Woodbury, MN, USA

Jean Graffius San Jose, CA, USA

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Block 20

Christie Kern Racine, WI, USA

Donna Hamill Underhill, VT, USA

Mary Bridges East Boothbay, ME, USA

Kay Sieck Omaha, NE, USA

Lea Ahmed Jussilainen Stockholm, SWEDEN

Linda Pigg Concord, NC, USA

Evelyn King Sellersburg, IN, USA

Linda Jones Chandler, AZ, USA

Mary Ann Sharrer & Patricia Snyder Colchester, CT, USA

Jennifer Wells Fort Collins, CO, USA

Sharon Demint Riverside, CA, USA

Jamey Hadden & Pat Baker Astoria/Victor, NY, USA

Nirmala Krishnan Copley, OH, USA

Madeleine O'Mara Merrimack, NH, USA

Diana Garmus & Nancy Greenlee Sacramento, CA, USA

Denise Brigode Perrysburg, OH, USA

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Block 21

Wilma Lazaridis Rowville, VIC, AUSTRALIA

The Esplanade Senior Center White Plains, NY, USA

Bert Swan's Siblings Carmel, NY, USA

The Esplanade Senior Center White Plains, NY, USA

The Esplanade Senior Center White Plains, NY, USA

Pat Banks Devine, TX, USA

The Esplanade Senior Center White Plains, NY, USA

Loretta Ramos Sacramento, CA, USA

Bernadette Stephens New Boston, NH, USA

The Esplanade Senior Center White Plains, NY, USA

Susan Simpson Bend, OR, USA

Donna Ellis Sun Valley, CA, USA

Brenda Broussard Gueydan, LA, USA

Dina Harris Wellfleet, MA, USA

The Esplanade Senior Center White Plains, NY, USA

Joyce Hartley Richmond, VA, USA

29


My husband, Dr. Gary Racusin, was diagnosed with Parkinson’s in December 2002. Struggling to right ourselves, we decided to continue to live as we always had. Parkinson’s would be the background, not the center of our lives. This quilt panel honors that decision. The panel represents some of Gary’s lifelong interests — his beloved San Francisco Giants Baseball Team, music, Abraham Lincoln and the Civil War, and Sherlock Holmes. With the inevitable course of Parkinson’s, our original decision has had to be modified somewhat. Nevertheless, Gary still follows the Giants, offers new tidbits he’s learned about Lincoln, welcomes us home with rock star accompaniments to his blasting stereo, and delights in tales of Mr. Holmes. While Parkinson’s is no longer in the background, Gary’s courage and determination are at the true center of our lives. This quilt panel honors his strength as he holds onto his passions.

I created this panel with all the things I love: old wedding dresses, lace and pearls. I have this romantic love of old wedding dresses. They always make me smile because I think of the young bride waiting at the back of the church, awaiting her big entrance and her new life. Living with Parkinson’s is kind of like a new marriage. It's a combination of fear, determination and hard work to make your life as happy as you can. I was 44 when I was diagnosed – three years and six months ago. I guess you could say I had to divorce myself from my old life and got remarried to my new one. A cure sure would make a nice wedding gift!

Cindy Craine Block 24

Nancy Moss-Racusin, Ph.D. Block 22

My granddaughter's second grade class at Shady Hill School in Cambridge, MA invited me to talk with the class about Parkinson's Disease Awareness Month and the PD Quilt project. They decided to support PDF by making three panels, 27 squares, as part of their study of early American crafts. The fish theme relates to their study of the Charles River and all the various links to the community. I have been a quilter for many years. For the past seven years since I was diagnosed with PD, hand-work, especially quilting and knitting, has helped me by keeping my mind and hands busy while still being productive.

Dianne Monahan Shady Hill School Grade 2E Block 23

Crafted by creative and talented people with Parkinson’s, whanau (family) and supporters throughout New Zealand, this quilt has at its center the words “Love,” “Care” and “Share”: principles that embody the spirit of caring. Each square is crafted using fabrics and motifs that are typically New Zealand — from the paua shell and endangered takahe bird to the kiwifruit — all iconic images. Quilters from the farming heartland province Taranaki display their mountain with a farming scene. Striking another note, a square embroidered with “Music Heals” features the importance of music in the lives of people with Parkinson’s. New Zealanders come from varied origins. Home spun wool crocheted and applied to the quilt harks back to the Scottish and Irish crofters and squares embody Maori motifs through the Te Wai Wai influence from the Pacific Islands. Diversity and creativity are celebrated in the coming together of this panel.

Parkinson’s New Zealand

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Block 23

Personal Statements


Block 22

Andrea Bursaw Newbury, MA, USA

Ambika Rajan Reading, Berkshire, UNITED KINGDOM

Deborah Hickerson Esparto, CA, USA

Harry Hershfield Bohemia, NY, USA

Joyce Hampton Ranson, WV, USA

Shari Price Kersey Fairview, NC, USA

Marilyn Mahan & Holly Mahan-Rowe Monroe, LA, USA

Angela Winters Essexville, MI, USA

Nancy Moss-Racusin, Ph.D. North Haven, CT, USA

Paula Stocks Vilonia, AR, USA

Rachel Smith Tallahassee, FL, USA

HeartSprings/Denise Morris Fargo, ND, USA

Michael Tomich & Ward Tomich Grand Rapids, MI, USA

Cheryl Frair Dayton, NV, USA

Rock Steady Boxing Indianapolis, IN, USA

Carol Blann New York, NY, USA

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Block 23

Shady Hill School Grade 2E Cambridge, MA, USA

Carolyn Weaver Freeland, MI, USA

Sarah Jensen International Falls, MN, USA

Janice Smith Philadelphia, PA, USA

Louise Lau Dodge City, KS, USA

Shady Hill School Grade 2E Cambridge, MA, USA

Carol Swisk Piedmont, OH, USA

Parkinson's New Zealand AOTEAROA, NEW ZEALAND

Parkinson's New Zealand AOTEAROA, NEW ZEALAND

Carol Swisk Piedmont, OH, USA

Shady Hill School Grade 2E Cambridge, MA, USA

Carol Meenen Gurley, AL, USA

Wisconsin Chapter APDA Madison, WI, USA

Rebecca Surmeier Emporia, KS, USA

Carol Swisk Piedmont, OH, USA

Wisconsin APDA Caregivers Madison, WI, USA

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Block 24

Sharron Hilbrecht Louisville, KY, USA

The Cure Parkinson's Trust London, UNITED KINGDOM

Mary Kidd Sissonville, WV, USA

Pigtails, Pirate Ships & Parkinson's Lodi, CA, USA

Marlene Urbina de Breen Wheaton, MD, USA

Betty Connolly Sissonville, WV, USA

The Cure Parkinson's Trust London, UNITED KINGDOM

Diane McGraw North Liberty, IA, USA

Pamela Woodard Whitefish Bay, WI, USA

Tammy Walker Hagerstown, MD, USA

Pamela Woodard Whitefish Bay, WI, USA

Jennifer Marquet Media, PA, USA

Canterbury Parkinson's Support Group Cedar Grove, NJ, USA

Yvonne Raes Slater, IA, USA

Cindy Craine Fort Worth, TX, USA

Movers & Shakers (Inc.) Naples, FL, USA

33


In 1967, my great-grandmother, Big Mama, introduced me to quilting. Inspired by the Double-Wedding-Ring quilt Big Mama made for my wedding in 1975, I created this original pieced-appliqué design. It blends an old traditional pattern, bits of old fabric scraps, machine quilting, and a bit of machine embroidery. This small quilt is much like our lives — the past with the present, old with new. Loved ones we’ve lost are still with us, sometimes in things we can actually touch as well as those intangible, yet very real, ways — memories, feelings and lessons.

Big Mama’s Legacy Block 25

It began with a tremor in my left hand, an almost imperceptible flutter that could have been attributed to weariness, but that persisted. So I chose to depict hands in my quilt panel, hands that are necessary for everyday functioning, hands that reach to be comforted, that comfort my caregiver, that reach for an end to this lurking evil. All the while, hope flutters like a butterfly, lightly, teasingly, beautifully hovering hope. The butterflies on this panel represent hope. This is not a very professionally quilted panel. I preferred to leave it in a primitive form, as I have learned through coping with Parkinson’s disease that sometimes perfection is not the goal. Accepting what I can do and presenting it as my best is the most I can offer. All of the materials in this panel are remnants of previous projects. We take what we have and make the most of it.

Peggy Titt Block 25

My first memory associated with Parkinson’s disease was as a young child visiting my grandmother in the nursing home. Due to a heavy tremor, she struggled to even bring a mug of coffee to her lips. In the past, my grandmother was a talented quilter, but always insisted that her quilts were made to be used, not hung for display. Therefore my brother and I always had lovely quilts on our beds growing up, but few have remained intact over the years. I now work at a Movement Disorders Clinic and help organize a support group for individuals and caregivers dealing with Parkinson’s disease. My quilt piece is dedicated to the wonderful people I’ve met in our group and to my grandmother, Marcella Martin. She was a fabulous wife, mother and grandmother.

34

Erika Gergerich Block 27

When my husband was diagnosed with PD five years ago, it really knocked us for a loop. I have to force myself sometimes to get quilting again. I enjoy making quilts, machine embroidery and all things related. Due to stress or fatigue, I have trouble making a decision on what to make or getting the energy to do whatever it is I want to do. I find that quilting helps me to just “go somewhere else” and forget the hassles of PD for a while. As a caregiver, PD has slowed down my productivity, my energy, and my creativity, but like my husband, I’ll be darned if it’s going to stop me from creating gifts for the family or anyone who sees my work. We decided when he was diagnosed that we would not let PD control our lives and we have worked to stay a step ahead whenever we can.

Sharon Patnoe Block 27

Personal Statements


Block 25

Peggy Willocks Johnson City, TN, USA

Sherry Winter Yonkers, NY, USA

Lisa Scudera New York, NY, USA

Sandra Costi Olympia, WA, USA

Virginia Koroly Huntersville, NC, USA

Susan Sawyer Albany, NY, USA

Pamela Warford Fort Worth, TX, USA

Big Mama's Legacy Lubbock, TX, USA

Sandi Dick Great Falls, MT, USA

Paige Harper St. Petersburg, FL, USA

Dorothy Rhoden Evans, GA, USA

Mary Hjalmarson Cardiff By the Sea, CA, USA

Susan W. Smith New Orleans, LA, USA

Peggy Titt Victoria, TX, USA

Erin Tyler Clearwater, FL, USA

Deborah Reid Jacksonville, FL, USA

35


Block 26

Houston, TX, USA

Lis Crawford Friendswood, TX, USA

Susan Freitag Houston, TX, USA

Emilia Heredia Houston, TX, USA

Martha Stein The Woodland, TX, USA

HAPS Houston, TX, USA

Alejandro Alvarez Katy, TX, USA

Max Elden Houston, TX, USA

HAPS Houston, TX, USA

Stan Rodman Houston, TX, USA

HAPS Houston, TX, USA

Anne Pribyl Houston, TX, USA

Georgene Brandon Houston, TX, USA

Roscoe Jones Pearland, TX, USA

Robert Stein The Woodlands, TX, USA

HAPS Houston, TX, USA

36

Houston Area Parkinson’s Society (HAPS) Quilt #2

HAPS


Block 27

Fayetteville, AR, USA

Erika Gergerich Fayetteville, AR, USA

Gillian Woods Fayetteville, AR, USA

Ann Roberts Fayetteville, AR, USA

Judy Marino Fayetteville, AR, USA

Sharon Patnoe Fayetteville, AR, USA

Ann Roberts Fayetteville, AR, USA

Sandy Woods Fayetteville, AR, USA

Sandy Woods Fayetteville, AR, USA

Fayetteville, Arkansas Senior Health PD Support Group Quilt

Sandy Woods

Ann Roberts Fayetteville, AR, USA

Jerry Patnoe Fayetteville, AR, USA

Judy Marino Fayetteville, AR, USA

Judy Marino Fayetteville, AR, USA

Sandy Woods Fayetteville, AR, USA

Sandy Woods Fayetteville, AR, USA

Sandy Woods Fayetteville, AR, USA

37


My panel is a tribute to my faith, family and friends who have accompanied me through my life’s journey of joy and sorrow, grief and anger, and now Parkinson’s. Parkinson’s is slowly stealing my strength, thoughts, and words. However, my faith, family, and friends will accompany me on this journey too as they always have and always will: turning despair into hope, anger into acceptance, and grief into a quiet joy. I am truly blessed.

Each piece of a quilt has its own color, pattern, texture and design with unique beauty and charm. But when the individual pieces of a quilt are sewn together, they become one magnificent work of art. Just as the pieces of a quilt have unique beauty, the people in my life have unique personalities, talents and skills. Their presence blesses me in countless ways. Who are the people in the patchwork of my life? They are those I am close to, as well as those I meet in passing. I give thanks for all of you who touch my life in some way. I enfold you in prayer and hold you in a special place in my heart. You are an important part of the fabric of my life — a tapestry of love.

Judy Murphy Block 29

Joan Szczepanksi

I decided to do this quilt panel as a person diagnosed with PD 13 years ago, because it is the right thing to do. I am not qualified to do research, but I can take part in Parkinson’s studies and I can make a quilt panel with the help of my husband, family and friends, and especially with hands-on help from my sister, June Metts. I dedicate this panel to the Lanier Village Estates PD support group, both past and present. I chose the autumn leaves pattern because it reminded me that PD is a disease that comes to you in the autumn years of your life. It is no respecter of persons. We come from all walks of life with different and varied symptoms. We are each like a leaf on an autumn tree; each using his or her own talent, working together as a whole, to one day soon find a cure.

38

Ruth Pearce Block 30

Block 30

My quilt square represents the things that PD has given me, rather than what is has taken away. The ukulele on the left side is my bell-weather. My neurologist always asks me if I’m still able to play and sing, and if so, he knows I’m doing okay! The buttons, the drawing, the crochet and decorations represent my crafting hobbies that have become so much more important to me since being diagnosed. Suddenly, I have this incredible urge to create, to express myself. So, I bead, carve, draw, crochet, write poetry and play music. I've done these things before, but never with so much joy. Finally, the two tulips in the middle represent the wonderful friends I’ve found through PD, whom I probably never would have met otherwise. Their support and that of my family and coworkers has been an absolute revelation to me; an inspiring and humbling experience.

Marian Bumala Block 29

Personal Statements


Block 28

Lisbon, PORTUGAL

Portuguese Parkinson’s Disease Association Quilt

Portuguese PD Association

39


Block 29

Vandalia, IL, USA

Rodeo Mom Vandalia, IL, USA

Charlene Pryor Vandalia, IL, USA

Patty Garcia-Grandon Concepcion, CHILE

Judy Murphy Vine Grove, KY, USA

Susan Hamlin Los Gatos, CA, USA

Cathleen Palmini Stevens Point, WI, USA

Patty Meehan Richmond TWP, MI, USA

Marian Bumala La Honda, CA, USA

Victor Lopez Conroe, TX, USA

Elaine Sulzberger Palo Alto, CA, USA

Charlene Pryor Vandalia, IL, USA

Charlene Pryor Vandalia, IL, USA

Peter Monday Lule Nairobi, KENYA

Donna Avolio Houston, TX, USA

Charlene Pryor Vandalia, IL, USA

40

PatientsLikeMe Quilt

Virginia McNeil


Block 30

Joan Szczepanski Bay City, MI, USA

Roslyn Helfen Westfield, NJ, USA

Wendi Levine Palm Beach Gardens, FL, USA

Margaret Wheeler Lansdale, PA, USA

Mary Goebel Cincinnati, OH, USA

Pamela Christner Newbury Park, CA, USA

Susan Dietrich Acton, CA, USA

Ruth Pearce Gainsville, GA, USA

Ellen Hogue Saratoga, CA, USA

Patsy Brown El Dorado Hills, CA, USA

Kristi LeFevre Round Lake Beach, IL, USA

Patricia Berkeley Keysville, VA, USA

Kathleen Reardon-Noblet Jamestown, RI, USA

Debra Steinmann Atlanta, GA, USA

Pauline Dehn Oakley, CA, USA

Terrie Prescott Orlando, FL, USA

41


For her amazing and selfless heart. For the way she takes care of everyone around her. For the example and inspiration she is. For the many days she fell in love. For her joyful, playful spirit. How motherhood made her shine and being a grandma makes her glow. For her insistence that homemade and handmade is always best. For her ability to cook for 100 and make it look like a walk in the park. Because she distinguishes between white, off white and “whipping cream” white. Because she believes ice cream is a frozen glass of milk. For her faith and her ability to see good in everyone. For her endless determination.

In honor of my mother, whose battle with Parkinson’s began 20 years ago. She is the bravest woman I know.

Marlene McNew Block 33

Jill Seward Block 33

Parkinson's disease came tiptoeing into our lives and our awareness a couple of years ago, although it had probably taken up residence somewhat earlier. My husband had always struggled with stiffness, so when that condition worsened, we simply attributed it to natural progression or (is it remotely possible?) that age was taking its toll. We now know that PD is the culprit, and that we need to adjust and adapt to new demands. I only became aware of the PDF Quilt Project within a month of the final acceptance date, so I chose to adapt some of my UFOs (in quilter terms that's UnFinished Objects) in order to complete a panel in time for submission. It seems to me that "adapting" to new or challenging situations may be the best solution for all of us whether we deal with PD in our lives or not.

42

I am very passionate about skiing. Because it gives me such a tremendous sense of freedom, skiing is one of my best means of dealing with PD. I also write poetry, a strange unexpected gift. I woke up one morning after a nightmare in which I was drowning (a PD dream) and a voice started dictating words and phrases. I had no background in poetry, but decided to follow the voice. Since July 2009, I’ve written more than 600 poems. Very recently, I started art classes in drawing and oil painting. Again, I am surprised at the results so far and am very much enjoying them. PD seems to have spurred my creative side and, for me, this feels like a gift.

Sharon Copeland Block 32

This panel is in honor of my husband Alan and depicts our happy memories of past vacations spent hiking in France. Alan and I were never very athletic — about the only form of exercise we were both good at was walking. We loved to hike the open-space trails near our home in California. Then we learned about the Chemin de St. Jacques, the 1,000-mile medieval pilgrimage trail through France and Spain to Santiago de Compostela. When Alan was 60, we set off to walk the trail from Le Puy-en-Velay. In two-week segments over three summers, we covered 350 miles of the trail. Then Alan began to have pain in his legs and had to give up hiking, and at age 70 he was diagnosed with Parkinson's. Five years later, some days he can still go out for a walk, but other days he struggles to walk at all. PD has made the memories of these wonderful vacations all the more precious to us.

Amy Van Voorhis Block 31

Personal Statements


Block 31

Allison Blakley Northbrook, IL, USA

Sally Webb Aberdeen, SD, USA

Beth DeLuco Plantsville, CT, USA

Susan Wing Carol Stream, IL, USA

Mary Hall Boulder, CO, USA

Barb Bense Long Prairie, MN, USA

Ruth Nielsen Coupeville, WA, USA

Beverlee A. Lanning Roswell, NM, USA

Harriett Potenza Western Springs, IL, USA

Susan Chase Bowdoinham, ME, USA

Kim Pope Pipersville, PA, USA

Sandra Martinez Fiol Miami, FL, USA

Amy Van Voorhis Walnut Creek, CA, USA

Nan Little Seattle, WA, USA

Diane Tunis Rockville, MD, USA

Linda Preston Delanco, NJ, USA

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Block 32

Sharon Copeland Albuquerque, NM, USA

Brian Grant Foundation Portland, OR, USA

Central IL PD Support Group East Peoria, IL, USA

Catherine Rodriguez San Diego, CA, USA

Mary Green Mishicot, WI, USA

Sharon Gaffor & Diane Johansen Elgin, IL, USA

Ellington, CT PD Group Ellington, CT, USA

Nancy Preston West Valley, NY, USA

Annette Corrado Port St. Lucie, FL, USA

Lynn Clement Royal Oak, MI, USA

Margaret Jones Mechanicsville, MD, USA

Marjorie E. Anderson Seattle, WA, USA

Karen Northrop New York, NY, USA

Ann Lew Kirschner Wellington, FL, USA

Barbara Allen Clifton Park, NY, USA

Patricia Young Deland, FL, USA

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Block 33

Susan Frangello New Port Richey, FL, USA

Joanne Abrahams White Plains, NY, USA

Dorothy Tanner Camden, TN, USA

Paula Eisele West Chester, OH, USA

Broomfield Support Group Broomfield, CO, USA

D. Sharon Creegan Morrisville, PA, USA

Tammy McPherson Kittanning, PA, USA

Caroline Tanner Berkeley, CA, USA

Terry Guerra San Jose, CA, USA

Nancy Cichy Elmhurst, IL, USA

Rhoda E. Pillsbury Rockford, IL, USA

Linda Rusk Folsom, CA, USA

Lillian Lockhart Jubiak West Palm Beach, FL, USA

Northamptonshire Support Group Northampton, UNITED KINGDOM

Jill Seward Oakdale, MN, USA

Marlene McNew San Jose, CA, USA

45


This photograph of one of my oil paintings and the words adapted from "Walden" remind me that life has much to offer, despite living with PD.

My mother died when I was 19; she was only 47. Although she was proud of my accomplishments at Cornell, she was concerned that I was working too hard. She suggested that I move to San Francisco and sell my paintings on the street. She wanted me to be happy; she wanted me to be free.

Since I didn’t have a clue on what to do, I ended up making my Grandpa more of a quilt sandwich. The quilt was made from one piece of fabric on the top, a piece of flannel for the back, and just simply sewn together. The top fabric had these old fashion bathing beauties on it, which was perfect for my Grandpa. My Grandpa was tucked in with “his ladies” for every nap for the next two years. My Grandpa loved “his ladies.”

I didn't take her advice, but I got her point. I continue to feel her love and support 33 years later. PD has been a curse, but also a gift. It forced me to slow down, and reminds me to make the most of every day — so that when I come to die, I do not "discover that I had not lived."

Marie Louise Hagen

There will always be a close connection between Parkinson’s and quilting for me. I made one of my first quilts for my Grandpa, who was just moving in to a nursing home due to advanced Parkinson’s. I wanted to make something for him that would make him feel more comfortable and know that he was loved and special. I thought a quilt would be just the thing.

Block 35

Block 34

This square is dedicated to people with Parkinson’s, as well as the scientists who search for the cure. For many people living with Parkinson’s, engaging in creative activity helps to suspend PD symptoms. Although the symptomatic relief is temporary (usually lasting only during the creative activity), I believe that researchers will someday be able to replicate that unknown power to perhaps suspend the symptoms indefinitely. Through diligent and creative research, I believe there will be an end to PD. The subtle message in this quilt square is found in the lettering of the message: “Be creative: Stop the symptoms, find a cure.” There are three letters in red which are outline-stitched in black thread… Y O U. The key to creativity is “YOU”; whether you are a patient or a scientist/researcher, be actively engaged in the creative process — both to help relieve the symptoms and ultimately to find a cure.

Sharon Stone Block 35

Our journey with PD started 10 years ago, though my John wasn't diagnosed until just last year — and then all the questions and symptoms fell into place and we had something to call it: Parkinson’s disease. We knew several people who had PD, but had very little knowledge about the disease. Now we know more, but as we talk with friends about how PD is actually affecting John's lifestyle, we want to communicate more clearly and widely what this disease does to a body. When this opportunity came to me, I thought "Why not?" I've been secretary to my local quilt guild for five years, but in spite of everyone's attempt to get me to be a “quilter,” I continue to be mostly a “quilt appreciator." I have never designed or made a quilt project, but in honor of my John, and our desire to increase education and research for combating this disease, here is my quilt square. I thought of our 37 married years, and our life here on the Central Coast of California when I designed my square. Mountains, and Yosemite in particular is a place for personal renewal and peace for my John, as the ocean is for me, so both had to be included in this block. The sandy beaches, the fruitful central valley, and the historic foothills are in between.

46

Linda Hanafee

Harriet Clark Block 36

Personal Statements


Block 34

Sandee Nisenfeld Churchville, PA, USA

Jared Bo Natick, MA, USA

Claire McCann Bradley, OK, USA

Carol Goodwin Missouri City, TX, USA

Patricia D. Murray Trumbull, CT, USA

Bonnie Miller Swain, NY, USA

Diane Crandell Garfield, AR, USA

Genevieve Yuen New York, NY, USA

Marie Louise Hagen Washington, DC, USA

Joann Keyes Maple City, MI, USA

Hendricks County Senior Services Clayton, IN, USA

Lonnie Memmer Fremont, OH, USA

Betty Percy Palm Beach Gardens, FL, USA

Richard H. Collins Westfield, WI, USA

Joan Emerson Biddeford, ME, USA

Helen Alison Swarbrick Toowoomba, Queensland, AUSTRALIA

47


Block 35

Linda Mason McMinnville, OR, USA

Mary Lou Palmer Waverly, NY, USA

Sharon Stone Morristown, NJ, USA

Brenda Thomas Crofton, MD, USA

Kathryn Paige Allendale, NJ, USA

Virginia Schwinge West Caldwell, NJ, USA

Donna Peacock Mount Vernon, IL, USA

Sandra Hartnett Woodstock, IL, USA

Lynda Conklin Vallejo, CA, USA

Carol Blue Spring Hill, FL, USA

Colleen Ryan Vanceburg, KY, USA

Jeannette Puckett Hudson, FL, USA

Janice Ramsey Taylor, MI, USA

Jean Neapolitan Hatboro, PA, USA

Janice Ramsey Taylor, MI, USA

Linda Hanafee Berkeley, CA, USA

48


Block 36

Jean Barfoot Fultondale, AL ,USA

Marguerite Pycha Chicago, IL ,USA

Cindy Fox West Chester, PA ,USA

Jill Nau Charles Town, WV ,USA

Amy Scott Brooklyn, NY ,USA

Michigan Parkinson Foundation Scottville, MI ,USA

Ann Marie Konopka Kendall Park, NJ, USA

Harriet Clark San Juan Bautista, CA, USA

Trudy Schneider Aurora, CO ,USA

Margit Pinter Metuchen, NJ, USA

Melinda Tilley Oak Ridge, TN, USA

Evie Ruiter Pipestone, MN, USA

Debra Lou Young New Albany, IN, USA

Barbara Pisching Suisun City, CA, USA

Ellen Dewsbury St. Augustine, FL, USA

MaryLou Wales Abington, MA, USA

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As a person with Parkinson’s (PWP), I felt a strong desire to participate in the quilt project but had no idea as to what design I could make. Fortunately, my friend, who is also a PWP, listened to me and said to start off the design with “penguins” because we sometimes walk like them! I liked this and immediately envisioned two penguins standing on ice and snow in the Arctic and looking skyward at the Northern Lights and seeing “Hope.” These last few months, I have had difficulty with my PD meds and have tremors most of the time, making it quite difficult to sew. My sister stepped in and did most of the sewing and we had a great time.

I have now started to make my own beads with clay. I find this, along with the beaded jewelry and crocheted items, to be very therapeutic.

Sherry Slutz

Block 37

Parkinson’s slowly and painstakingly crept in and stole my father, our family’s golden patriarch. Technically my father died from complications of a stroke. I can’t help thinking that a blood clot had developed from all the bruising and black and blues he had sustained from his countless falls from his unpredictable and undependable body. My Dad was a vibrant, hard working, loving family man. He was the “American Dream”! One of eight children of Italian immigrants, a first generation American, a World War II veteran, P.O.W., a man who didn’t have a high school degree. But he managed to move his family out of the city to the suburbs, to a house with a backyard and pool. He built on weekends while others were resting for the next week. He worked hard to support his family, most of his life working two jobs. It was heartbreaking to see this strong man develop a shuffling, stooped walk, see his hands tremble and shake as he ate, lose his booming rich voice and see the onset of dementia and confusion. This quilt is dedicated to this amazing man. It was sponsored by his wife, children, and their spouses, grandchildren and great grandchildren. It was designed, stitched and sewn together with love, respect and adoration. Enjoy our father’s story and the retelling of his life’s journey.

Charles Lucania Memorial Quilt Block 38

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I have always enjoyed crafting of all sorts, but I now find that keeping busy by making these items helps with my symptoms of PD. I also find that I have a sense of calm when creating. This also gives me a sense of individuality. I still am Sherry, and not “Sherry that has PD.”

Cheryl Byrne

My quilt panel displays my beaded jewelry pieces and some crocheted items that I have made over the course of the past year.

Block 39

My husband was first diagnosed with Parkinson’s about 10 years ago when he was 55. Major life changes were in order. His way of looking at life did not change, however. While he is no longer able to play his beloved guitar, instead he has become an enthusiastic fan and collector of music. Though he is no longer able to enjoy the dynamic of playing basketball with our two sons, they now gather in our living room and enthusiastically cheer our local team — the Golden State Warriors. Yes, Parkinson’s can devastate and bring sadness to a family. My husband chose to transfer his passion to other aspects of his life. His chief creative outlet is photography. In particular, California’s rugged coastline keeps beckoning him back. Then there is a photo of me in a mini skirt — but that’s another quilt, and another story for another time.

Linda Siquig Block 37

Personal Statements


Block 37

Catherine Reiter Altoona, WI, USA

Patricia Alcaro Rumson, NJ, USA

Betty Houston Austin, AR, USA

Margaret Durazo Yuma, AZ, USA

Susan Kaness Flourtown, PA, USA

Lois Gwinn Butternut, WI, USA

Janet Shinkle Liberty, MO, USA

Julia Huestis Lowell, MA, USA

Ana Caneira Newark, NJ, USA

Linda Siquig San Jose, CA, USA

Jackie Kreutzer Columbus, OH, USA

Rachael Schneider East Brunswick, NJ, USA

Cynthia Craven Asheboro, NC, USA

Cheryl Byrne Auburn, CA, USA

Audrey Winthrop Sunset Beach, CA, USA

Virginia Schwinge West Caldwell, NJ, USA

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Block 38

Apex, NC, USA

Lina Lucania Melville, NY, USA

Tragakis Family Fort Gordon, GA, USA

Linda Vietri Delray Beach, FL, USA

Vietri Family London, UNITED KINGDOM

Clinton Family Apex, NC, USA

Tragakis Family Fort Gordon, GA, USA

Jackie & Joe Blanton Alexandria, VA, USA

Lina Lucania Melville, NY, USA

Phelan Family Alto Loma, CA, USA

Vietri Family London, UNITED KINGDOM

Jackie & Joe Blanton Alexandria, VA, USA

Laura & Ron DePace Newburgh, NY, USA

Mark & Lisa DePace Newburgh, NY, USA

Linda Vietri Delray Beach, FL, USA

Phelan Family Alto Loma, CA, USA

52

Charles Lucania Memorial Quilt

Clinton Family


Block 39

Peggy Willocks Johnson City, TN, USA

Cislyn Smith Madison, WI, USA

Betty Higgins Presque Isle, ME, USA

Sue Mangiapane Encinitas, CA, USA

Jack and Carol Pally Staten Island, NY, USA

Marlene Gatesy Gaylord, MI, USA

Kim Vitcenda Cade Viroqua, WI, USA

Karen Vaughan Brooklyn, NY, USA

Andree Jannette West Chester, PA, USA

Sue Mangiapane Encinitas, CA, USA

Charlie and Jean Condon Grundy, VA, USA

Heidi Bissell Madison, WI, USA

Sherry Slutz Philadelphia, PA, USA

Vicki Loar Glendale, AZ, USA

Michael Mostransky Wantagh, NY, USA

Elizabeth Fogarty Erie, PA, USA

53


Block 40

Kathryn Vaandrager & Debra Vanthul Sheldon, IA, USA

Congrex UK Ltd Glasgow, Scotland, UNITED KINGDOM

Peggy Willocks Johnson City, TN, USA

Norman Dean Inskeep Grand Junction, CO, USA

Kim Vitcenda Cade Viroqua, WI, USA

Linda Bell Supply, NC, USA

Terri Vanden Bosch & Karen Vis Rock Valley, IA, USA

Larry Schneider, Jr. Gibbsboro, NJ, USA

Kim Vitcenda Cade Viroqua, WI, USA

Paul J. Schroder Denver, CO, USA

Joyce Levine Jerusalem, ISRAEL

Lorna Woor Cambridge, UNITED KINGDOM

Alison Patricia Browning Llandudno Junction, UNITED KINGDOM

Barbara Cissne Garland, TX, USA

April Curfman Gresham, OR, USA

Katherine Castle Gainesville, FL, USA

54


Block 41

Kim Vitcenda Cade Viroqua, WI, USA

Lynne Stefanetti Paradise, CA, USA

Stephanie Cassell Hartlepool, UNITED KINGDOM

Nan Little Seattle, WA, USA

Ancret Shipton Nar Nar Goon, VIC, AUSTRALIA

Elaine Sulzberger Palo Alto, CA, USA

William Rice Limerick, IRELAND

Rita Thomson Innerleithen, SCOTLAND

Hayley Carpenter for PAN Washington, DC, USA

Thelma Balbes Carlsbad, CA, USA

Elaine Sulzberger Palo Alto, CA, USA

Jackie Hunt-Christensen Minneapolis, MN, USA

Jane Asher for Parkinson’s UK London, UNITED KINGDOM

Gert McMullin Atlanta, GA, USA

George Hanks Westerlo, BELGIUM

Kathleen Blose Hartford, UNITED KINGDOM

55


People Behind the Parkinson’s Quilt

Canterbury Parkinson’s Support Group

Ruth Pearce | Block 30

Block 24

HeartSprings Denise Morris Block 22

Curt Van Tassell with the panel of Jo Ann Van Kessel

Betty Houston | Block 37

Block 19

Gary Crutchfield | Block 19

Elena Tuero | Block 9

Diane McGraw | Block 24

Lois Cole | Block 5

Jean Graffius & Laura Kamian with the panel of Beth Murphy Block 19

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The true power of the Parkinson’s Quilt Project comes from the more than 600 individuals who have created the pieces. When the quilt is displayed, it will radiate the contributions of those around the world touched by Parkinson’s. It will also remind the world that we need increased awareness and funds to find a cure.

Robin Elliott Executive Director, Parkinson’s Disease Foundation

Michael Mostransky

Jean Graffius | Block 19

Rita D'Alonzo | Block 10

Cathleen Palmini | Block 29

Block 39

Brenda Lockhart Colombo and Lillian Lockhart Jubiak Block 33

The Stewart Family Block 19

Ellington, CT PD Group

Helen Alison Swarbrick

Block 32

Block 34

Niska | Block 10

Tashi Shaikh, Asima Haroon, and Haroon Basheer Block 12

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A Abrahams, Joanne, 45 Ahmed Jussilainen, Lea, 28 Alcaro, Patricia, 51 Allan, Susan, 6, 9 Allen, Barbara, 44 Allen, Sheryl, 9 Alvarez, Alejandro, 36 Alvey, Barbara, 27 Ampudia, Mona, 9 Andersen, Mindy Kirsten, 11 Anderson, Marjorie E., 44 Anwer, Salika, 17 Arehart, Katherine, 11 Armstrong, Jeanne, 24 Armstrong, Linda, 13 Asher, Jane, 55 Atkin, Anne, 5 Avolio, Donna, 40

B Backus, Barbara, 12 Baker, Michele Lee, 21 Baker, Pat, 28 Balbes, Thelma, 55 Ballard, Lois, 18, 19 Banks, Pat, 29 Barfoot, Jean, 49 Barshow, Lora, 19 Barzely, Jacqueline Michal, 21 Basheer, Haroon, 55 Basheer, Raniyah, 17 Basheer, Rayyan, 17 Bass, Esther, 9 Beauharnois, Mary Lou, 19 Bell, Linda, 54 Bennett, Lynn, 23 Bense, Barb, 43 Berkeley, Patricia, 41 Berrien County Support Group, 25 Bersan, Carol, 8

58

Bert Swan's Siblings, 26, 29 Bethany Convent, 12 Bierle, Arthur, 24 Bierle, Patricia, 24 Big Mama's Legacy, 34, 35 Bismarck Parkinson's Support Group, 4 Bissell, Heidi, 53 Bissell, Patricia, 4 Blake, Yvonne, 11 Blakeney, Nicky, 25 Blakley, Allison, 43 Blann, Carol, 31 Blanton, Jackie, 52 Blanton, Joe, 52 Blose, Kathleen, 55 Blue, Carol, 48 Bo, Jared, 47 Booth, Janet, 19 Booth, Mary, 9 Bopp, Sheila, 15 Boyd, Sheryl, 25 Brady, Colleen, 25 Brandon, Georgene, 36 Breedlove, Rebecca, 11 Brian Grant Foundation, 44 Bridges, Mary, 28 Brigode, Denise, 28 Broaddus, Kathleen, 12 Brodsky, Arlene, 23 Broomfield Support Group, 45 Broussard, Brenda, 29 Brown, Clarita, 16 Brown, Laurie, 24 Brown, Patsy, 41 Browning, Alison Patricia, 54 Brumer, Rachel, 12 Bumala, Marian, 38, 40 Burns, Jean, 18, 20 Bursaw, Andrea, 31 Byrne, Cheryl, 50, 51

C Cahalane, Donna, 23 Calvin, Aubrey, 16 Campion, Diane M., 21 Caneira, Ana, 51 Canterbury Parkinson's Support Group, 33, 56 Carpenter, Hayley, 55 Cassell, Stephanie, 55 Cassidy, Carol, 8 Castle, Katherine, 54 Catton, Janice, 8 Central IL PD Support Group, 44 Charles Lucania Memorial Quilt, 50, 52 Chase, Susan, 43 Cho, Duk Kyung, 3 Choae, Jin Kyoung, 3 Christner, Pamela, 41 Churchman, Mike, 16 Cichy, Nancy, 45 Cissne, Barbara, 54 Clark, Gracia, 13 Clark, Harriet, 46, 49 Claycomb, Maralyn, 12 Clement, Lynn, 44 Cline, Shirley, 15 Clinton Family, 52 Club CREATE- Struthers PD Center, 7, 27 Colalillo, Louise, 8 Cole, Lois, 8, 56 Cole, Patricia, 8 Collins, Cathy, 23 Collins, Michael, 23 Collins, Richard H., 47 Colombo, Brenda Lockhart, 57 Columbia PD Support Group, 24 Condon, Charlie, 53 Condon, Jean, 53 Congrex UK Ltd, 54

Conklin, Lynda, 48 Connolly, Betty, 33 Copeland, Sharon, 42, 44 Corrado, Annette, 44 Costi, Sandra, 35 Craine, Cindy, 30, 33 Crandell, Diane, 47 Craven, Cynthia, 7, 51 Crawford, Lis, 36 Creegan, D. Sharon, 45 Crowningshield, Carol, 19 Crutchfield, Gary, 27, 56 Cure Parkinson's Trust, The, 33 Curfman, April, 54 Curtis, Robert, 16 Cushman, Mildred, 15

D D'Alonzo, Rita, 14, 15, 57 D'Anieri, June, 11 Danish PD Association, 21 Davis Phinney Foundation, 24 De Leon, Maria L., M.D., 13 DeGraaf, Karen, 13 Dehn, Pauline, 41 DeLeon, Paquita, 16 Dell, Karen, 15 Delsignore, Kate, 19 DeLuco, Beth, 43 Demint, Sharon, 28 DePace, Mark, 52 DePace, Laura, 52 DePace, Lisa, 52 DePace, Ron, 52 Dewsbury, Ellen, 49 Dick, Sandi, 35 Dietrich, Susan, 41 Diez, Kathleen, 10, 13 Dill, Barbara, 12 Dolan, Marion, 21 Doughty, Gayla, 10, 12


Driscoll, Michael, 16 Durazo, Margaret, 51 Durkee, Diane, 24

E Eager, Heather, 2, 3 Edison, Cindy, 13 Eisele, Paula, 45 Elden, Max, 36 Eleanor Flowers' Children, 13 Ellington, CT PD Group, 44, 57 Ellis, Donna, 29 Emerson, Joan, 47 Engel, Joan, 24 Esplanade Senior Center, The, 29

F Farley, Becky, 20 Farley, Shirley, 20 Feinberg, Barbara, 3 Feinberg, Linda, 3 Fiol, Sandra Martinez, 43 Fisher, Joyce, 25 Flagstaff Support Group, 20 Fogarty, Elizabeth, 53 Foley, Lisa, 3 Ford, Barbara, 25 Fox, Cindy, 49 Frair, Cheryl, 31 Frangello, Susan, 45 Franz, Warren, 16 Freitag, Ellis, 16 Freitag, Susan, 36 Fritz, Kathleen Hyland, 23 Fry, Carol, 16

G Gaffor, Sharon, 44 Gagnier, Mary, 19 Garcia-Grandon, Patty, 40 Garmus, Diana, 28

Gatesy, Greg, 4 Gatesy, Marlene, 53 Gemmill, Niki, 19 Gergerich, Erika, 34, 37 Gerry, Helen, 6, 9 Glass, Wendy, 20 GlaxoSmithKline Staff, 17 Goebel, Mary, 41 Goldman, Suzanne, 12 Goodwin, Carol, 47 Graffius, Jean, 26, 27, 56, 57 Gray, Jane, 3 Green, Mary, 44 Greenfield, Laurence, 23 Greenlee, Nancy, 28 Guerra, Terry, 45 Gwinn, Lois, 51

H Habenstreit, Linda, 12 Hadden, Jamey, 28 Hagen, Marie Louise, 14, 15, 46, 47 Hall, Mary, 43 Halpern, Carol, 25 Hamill, Donna, 28 Hamilton, Jean, 13 Hamlin, Susan, 40 Hampton, Joyce, 31 Hanafee, Linda, 46, 48 Hanks, George, 55 Haroon, Asima, 57 Harper, Paige, 35 Harris, Dina, 29 Harrison, Paris, 11 Hartley, Joyce, 29 Hartnett, Sandra, 48 Hashmi, Talat, 17 Hatke, Carole, 12 Hatke, Jen, 12 Healy, Patricia, 12 HeartSprings, 31, 56

Helfen, Roslyn, 41 Hendelman, Judith, 15 Hendricks County Senior Services, 47 Heredia, Emilia, 36 Herman, Elly, 22, 25 Hershfield, Harry, 31 Hickerson, Deborah, 31 Higgins, Betty, 53 Hilbrecht, Sharron, 33 Hjalmarson, Mary, 12, 35 Ho, Cynthia, 8 Hogue, Ellen, 41 Holman, William, 24 Holveck, Leanne, 23 Houston Area Parkinson's Society (HAPS), 36 Houston, Betty, 51, 56 Huestis, Julia, 23, 51 Huffman, Patricia, 11 Huseman, Katherine, 8 Huizinga, Mary, 3 Hull, Eleanore, 8 Hunt-Christensen, Jackie, 55

I Inskeep, Norman Dean, 54

J Jackson, Judith, 24 Jacobowitz, Michelle, 11, 23 Jacobs, Lynette, 4 Jannette, Andree, 53 Jecmen, Judi, 3 Jenkins, Kay Mixson, 7 Jensen, Sarah, 32 Johansen, Diane, 44 Jones, Linda, 28 Jones, Margaret, 44 Jones, Roscoe, 36 Jubiak, Lillian Lockhart, 45, 57

K Kamian, Laura, 56 Kammann, Linda, 25 Kane, M.F., 24 Kaness, Susan, 51 Kawabe, Aiko, 7 Keene, Dottie, 23 Keene, Jen, 23 Keene, Lauren, 23 Kern, Christie, 28 Kersey, Shari Price, 31 Keyes, Joann, 47 Kha, Sharon, 20 Kidd, Mary, 33 King, Evelyn, 26, 28 Kirschner, Ann Lew, 44 Konopka, Ann Marie, 49 Koroly, Virginia, 35 Kozlowski, Yvonne, 25 Kreutzer, Jackie, 51 Krishnan, Nirmala, 28 Kuklis, Louise, 27

L Ladies of the Lake Quilters, 19 LaGana, Christine, 18, 21 Laipply, Sandy, 25 Lanning, Beverlee A., 43 Lary, Brenda, 16 Lau, Louise, 32 Lauck, Meg, 16 Lavender, Beverly, 2, 5 Laverty, Lenore, 3 Layman, Megan, 25 Lazaridis, Wilma, 29 Lees, Karen, 21 Lees, Meryl, 21 LeFevre, Kristi, 41 Levine, Joyce, 54 Levine, Wendi, 41 Lichtig, Barbara, 19

59


Licko, Marian, 25 Lish, Marlene, 24 Little, Nan, 43, 55 Loar, Vicki, 53 Longacher, Lisa, 8 Lopez, Victor, 40 LSVT Global, 20 Lucania, Lina, 52 Lukens, Pat, 10, 11 Lule, Peter Monday, 40

M Macke, Linda, 11 Magic, Margaret, 15 Mahan, Marilyn, 31 Mahan-Rowe, Holly, 31 Majeske, Cheryl, 4 Majidulla, Sleem, 14, 17 Mangiapane, Sue, 23, 53 Marino, Judy, 37 Marquet, Jennifer, 33 Marte, Christine, 27 Mason, Linda, 48 Massey, Annelies, 4 McCann, Claire, 47 McGraw, Diane, 33, 56 McMullin, Gert, 55 McMurtry, Kathleen, 6, 9 McNeil, Virginia, 40 McNew, Marlene, 42, 45 McPherson, Tammy, 45 Meehan, Patty, 40 Meenen, Carol, 32 Mellus-Whiting, Stacey, 25 Memmer, Lonnie, 47 Michigan Parkinson Foundation, 49 Miller, Bonnie, 47 Milton, Wanda, 4 Moll, Marilyn, 23 Monahan, Dianne, 30 Moore, Carol, 27

60

Morris, Denise, 31, 56 Morris, Patricia, 9 Moskowitz, Issy, 27 Moss-Racusin, Nancy, Ph.D., 30, 32 Mostransky, Michael, 53, 57 Moulton, Pamela, 5 Movers & Shakers (Inc.), 33 Muller, Ans, 3 Murphy, Beth, 26, 27, 56 Murphy, Debbie, 27 Murphy, Judy, 38, 40 Murray, Patricia D., 47 Murray, Susan, 3

N Nacogdoches PD Support Group, 22, 24 Nau, Jill, 49 Neapolitan, Jean, 48 Nielsen, Ruth, 43 Nisenfeld, Sandee, 47 Niska, 15, 57 NJ Chapter APDA, 25 Northamptonshire Support Group, 45 Northrop, Karen, 44 Novichihin, Irene, 12

O Ober, Martha, 20 O'Mara, Madeleine, 28 Oxford PD Support Group, 23

P Page, Susan, 15 Paige, Kathryn, 48 Pally, Carol, 53 Pally, Jack, 53 Palmer, Mary Lou, 25, 48 Palmini, Cathleen, 40, 57 Paolini, Alison, 4

Parkies Jammin, 7 Parkinson’s Action Network, 55 Parkinson's Disease Foundation, 5 Parkinson's New Zealand, 30, 32 Parkinson's Quilt Project Committee, 20 Parkinson’s UK, 55 Parkinson’s UK-Newcastle Branch, 4 Patlogan, Ila, 11 Patnoe, Jerry, 37 Patnoe, Sharon, 34, 37 Pauesick, Chyleen, 23 PCC Neurowriters, 8 PD Fdn. of the Heartland, 27 PDPlan4Life, 20 Peacock, Donna, 48 Pearce, Ruth, 38, 41, 56 Percy, Betty, 47 Petrites, Anna, 16 Petropoulos, Helga, 19 Peyton, Rebecca, 13 Pfeiffer, Gail, 24 Phelan Family, 52 Pigg, Linda, 28 Pigtails, Pirate Ships & Parkinson's, 33 Pillsbury, Rhoda, 45 Pinter, Margit, 49 Pisching, Barbara, 49 Pizarro, Miriam, 7, 13 Pope, Kim, 43 Portuguese PD Association, 39 Potenza, Harriett, 43 Poynter, Gail, 9 Prescott, Terrie, 41 Preston, Linda, 43 Preston, Nancy, 44 Pribyl, Anne, 36 Pryor, Charlene, 40 Puckett, Jeannette, 48

Pycha, Marguerite, 27, 49

Q Qureshi, Samina, 17

R Raes, Yvonne, 33 Rajan, Ambika, 31 Ramos, Loretta, 29 Ramsey, Janice, 48 Rancourt, Georgia, 12 Reardon-Noblet, Kathleen, 41 Reid, Deborah, 35 Reiter, Catherine, 22, 23, 51 Renfrow, Judie, 9 Rhea, Christine, 11 Rhoden, Dorothy, 35 Rice, William, 55 Roberts, Ann, 37 Robson, Lynda, 13 Rock Steady Boxing, 31 Rodeo Mom, 40 Rodman, Myrna, 16 Rodman, Stan, 36 Rodriguez, Catherine, 44 Rodriquenz, Nancy, 9 Rubin, Alan, 2, 4 Ruiter, Evie, 49 Runyan, Rosemary, 27 Rusk, Linda, 45 Russell, John, 19 Russell, Judy, 19 Rutledge, Melinda, 27 Ryan, Colleen, 48 Rykken, Cheryl, 11

S Saari, Davanna, 7 Samad, Ayesha, 17 Sampsell, Karen, 11 Sanger, Laura, 13


Sanner, Audrey Gray, 7, 9 Sawyer, Susan, 35 Schneider Jr., Larry, 2, 3, 7, 54 Schneider, Lois, 3 Schneider, Rachael, 51 Schneider, Trudy, 49 Schroder, Paul J., 54 Schwartz, Edith, 4 Schwinge, Virginia, 48, 51 Scott, Amy, 49 Scudera, Lisa, 35 Sechter, Judi, 12 Seward, Jill, 42, 45 Shade, Jeannine, 24 Shady Hill School Grade 2E, 30, 32 Shaikh, Tashi, 17, 57 Shareef, Shahla, 17 Sharrer, Mary Ann, 28 Shaternik, Lydia, 23 Sherrick, Patricia, 5, 8 Shinkle, Janet, 51 Shipton, Ancret, 55 Shoaib, Shahzadi, 14, 17 Sieck, Kay, 28 Simpson, Susan, 29 Siquig, Linda, 50, 51 Slutz, Sherry, 50, 53 Smith, Cislyn, 53 Smith, Eric, 4 Smith, Janice, 32 Smith, Karen, 24 Smith, Pamela, 9 Smith, Rachel, 31 Smith, Susan W., 35 Smyser, Diana, 5 Snyder, Charlene, 5 Snyder, Patricia, 28 Solari-Ruscoe, Carol, 19 Spencer, Linda, 9 Standish, Sharon, 3 Stark, Sharon, 9

Stefanetti, Lynne, 10, 11, 55 Steichen, Joanna, 5, 6, 7 Stein, Martha, 36 Stein, Robert, 36 Steinmann, Debra, 41 Stephens, Bernadette, 29 Stewart Family, The, 27, 57 Stocks, Paula, 31 Stone, Sharon, 7, 46, 48 Sulzberger, Elaine, 40, 55 Surmeier, Rebecca, 32 Swarbrick, Helen Alison, 47, 57 Swisk, Carol, 32 Szczepanski, Joan, 38, 41

T Tanner, Caroline, 45 Tanner, Dorothy, 45 Team Parkinson, 4 Teem, Penny, 21 Thomas, Brenda, 48 Thomson, Rita 55 Tilley, Melinda, 49 Titt, Peggy, 34, 35 Tomich, Michael, 31 Tomich, Ward, 31 Tragakis Family, 52 Traverse, Elizabeth Anne, 12 Tuero, Elena, 7, 13, 56 Tunis, Diane, 43 Turner, Caralyn, 9 Tyler, Erin, 35

U Urbina de Breen, Marlene, 33 Urquhart, Heather, 15

V Vaandrager, Kathryn, 54 Valley Golden Living Center, 13 Van Kessel, Jo Ann, 27, 56

Van Lenten, Marilyn, 24 Van Tassell, Curt, 54 Van Voorhis, Amy, 42, 43 Vanden Bosch, Terri, 54 Vanthul, Debra, 54 Vaughan, Karen, 53 Victor, Charlene, 16 Vietri Family, 52 Vietri, Linda, 52 Vis, Karen, 54 Vitcenda Cade, Kim, 4, 7, 53, 54, 55 Votaw, Melanie, 13

Woods, Gillian, 37 Woods, Sandy, 37 Woor, Lorna, 54

Y Yarnold, Patricia, 5 Young, Debra Lou, 49 Young, Patricia, 44 Yuen, Genevieve, 47

Z Zander, Sandra, 8 Zeba, Nilofar-Nighat, 17

W Wagner, Barbara, 19 Wales, MaryLou, 49 Walker, Tammy, 33 Warford, Pamela, 35 Weaver, Carolyn, 32 Webb, Linda, 7, 18, 20 Webb, Sally, 43 Weimer, Carolyn, 15 Wells, Jennifer, 28 Weyand, Mary, 16 Wheeler, Margaret, 41 White, Lorna, 21 Wiener, Marcia, 20 Willocks, Peggy, 7, 35, 53, 54 Wilson, Sheryl, 11 Wing, Susan, 43 Winter, Sherry, 35 Winters, Angela, 31 Winthrop, Audrey, 22, 24, 51 Wisconsin APDA Caregivers, 32 Wisconsin Chapter – APDA, 32 Wiseman, Janice, 13 Wittig, Linda, 15 Wong, Dorothy, 16 Wood, Nancy, 7 Wood, Patricia, 19 Woodard, Pamela, 33

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Bring The Parkinson’s Quilt to Your Community In 2011, the Parkinson’s Disease Foundation (PDF) will make sections of the Parkinson’s Quilt Project available for rent to communities all over the world. Displaying the Quilt offers a unique opportunity to raise awareness of Parkinson’s and educate others about the disease. Any individual, organization or company may apply to rent a section of the Quilt. Specific panels can be requested. Rental fees will vary. Most of the proceeds raised by these fees will support the maintenance of the project; any remaining funds will support PDF’s research efforts to explore the therapeutic value of creativity in Parkinson’s. For more information or to apply to rent sections of the Parkinson’s Quilt, visit www.pdf.org/en/quilt or email quilt@pdf.org.


© 2010 Parkinson’s Disease Foundation


Thimble Sponsor Anonymous

Friends of the Parkinson’s Quilt Project Biotechnology Industry Organization Broadridge Financial Solutions Focus On A Cure Foundation Frances Grandlund Mary Duke Biddle Foundation Schering Plough Sue Smith

Benefactors Conrad W. De Fiebre Thomas P. Racobaldo Ronald Rashid Toshiba Winters Brothers Recycling

Gifts in Kind American Airlines Avery Crayola FedEx Hewlett Packard- HP

Logitech Nikon Samsonite Luggage Toshiba Uncle Bob’s Self Storage

Fabric Donors A. Schneller Sons, Inc. ALB International Fabrics HS Company Pierre Frey

PDF would like to thank The Names Project Foundation - AIDS Memorial Quilt for their time and the advisory role they played in helping to launch the Parkinson’s Quilt Project.

Parkinson’s Disease Foundation 1359 Broadway, Suite 1509, New York, NY 10018 (212) 923-4700 / (800) 457-6676 | www.pdf.org

PDF Quilt Project 2011  

PDF Quilt Project 2011 Updated

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