Suzanne
Is lupus genetic? My honest answer is, clearly more work needs to be done on this topic. Hopefully some of the information in this edition of Living with Lupus Magazine will provide you with more information.
During my incredible journey with lupus, I have sought out an answer to this question. I have received many answers from those in the medical arena, and they believe there is a genetic component, but still we know that more research is needed.
It is no secret that I have an identical twin, Jeannine. We are a 100% DNA match and have participated in several studies over the years. I do have systemic lupus erythematosus along with many of its autoimmune brothers and sisters. Thankfully, Jeannine is healthy and does not have any of them.
Still, even though I am thrilled that she is not plagued with the many issues I have, I cannot help but wonder what is going on? If we are so identical, what role does genetics play in our world? Interesting enough, I have two other siblings. We all share the same birthdays. They do not have lupus, but they do share a common disease called Thalassemia Anemia. Still, Jeannine is the healthiest of the bunch, where I have always held the title of the “Sick Twin”.
At the chapter office, hundreds of newly diagnosed constituents raise questions about genetics. They often ask, “What about my children, will they get lupus too?” Many patients state that their doctors say they have genetic markers for lupus. But years later we still don’t have a clear answer on what causes lupus. Though I do have to say that I have not seen many family connections and for that I am thankful. It must mean that something else is also at play.
Over the years, I have met about a dozen sets of twins where only one of them has been impacted by lupus. Thankfully, the other twin is healthy. In fact, I have never met a pair of twins who both have the disease. I welcome any twins who are interested to join me for conversations and research opportunities. In fact, if lupus runs in your family in any way I would love to have a conversation with you! I invite you to join our chapter’s podcast, “My Lupus Living Room” or just a casual conversation. We learn so much from our peers.
In case any twins are reading, here is some information from the NIH published article, Genetic Factors Predisposing to Systemic Lupus Erythematosus and Lupus Nephritis1:
• There is indirect evidence that supports a genetic cause in systemic lupus erythematosus (SLE) and lupus nephritis (LN).
• Twin studies have estimated that the rate or proportion of twins that share SLE is 24-25% in identical twins and 2-5% of fraternal twins.
• Familial studies have demonstrated that about 10-12% of SLE patients have close family members with the disease, as compared to less than 1% of people who do not have lupus.
• There is evidence that supports a genetic factor in being susceptible to developing LN.
Genetics is always a hot topic, and lupus research has been moving along faster than I could ever have imagined or hoped for. The fact that I have lived long enough to see it come to fruition is a miracle. For decades I have watched my fellow lupians go to the Capitol and make major asks for lupus funding. We had finally seen fruit to our advocacy efforts with funding for NIH, CDC and DOD. Unfortunately, now, I am very concerned about the research funding cuts coming out of Washington and the long-term impact of these cuts. They could derail the vital progress we have made. If this continues, we may never uncover the cause, genetic or otherwise. We may never find a cure, and we may never know how to live life better with lupus.
To find answers, we must stay informed about current events, especially with our state legislature and the US Congress. Your voice and vote matter. Together, we can make progress in lupus research and healthcare programs. We can ensure lupus remains at the forefront of the public health agenda.
Ohio legislators removed the earmark from our state budget without warning or reason. I am deeply concerned. Please get involved. Contact me at the office so we can work together towards a future without lupus.
With a worried heart,
Suzanne Tierney President & CEO
Lupus Foundation of America, Greater Ohio Chapter
1https://pmc.ncbi.nlm.nih.gov/articles/PMC2847514/
Pg. 1-2 Letter from Suzanne
Pg. 4-5 Patient Navigator Corner: May 2025
Pg. 6-8 Patient Story: Heather Ransom & Sharon Ward
Pg. 9-11 Patient Story: Kiara and Moses Graham
Pg. 12-15 Research & News
Pg. 16-17 Walk to End Lupus Now®
Pg. 18 Lupus Golf Outing
Pg. 19-21 Why Lupus Happens: The Roles of Your Genes & Environmental Factors
Pg. 22-24 The Double Burden: Caregiving with Lupus
Pg. 25 Blog & Podcast
Pg. 26-27 Get Involved & Ways to Give
Pg. 28-29 Could You Have Lupus?
Pg. 30 Staff Page
Patient Story: Kiara and Moses Graham
2224 1921 Why Lupus Happens: The Roles of Your Genes & Environmental Factors The Double Burden: Caregiving with Lupus 6-8 Patient Story: Heather Ransom & Sharon Ward 911
PATIENT NAVIGATOR CORNER
MAY 2025 | BY RITA PICCIN
The Patient Navigator program is funded in part by an earmark from the State of Ohio and managed by the Ohio Department of Health.
In this issue of “Living With Lupus,” we are examining how lupus can be inherited from one generation to another in some families and how it impacts individuals and families. Research has shown that genes can play a role in developing lupus, and that 20 percent of lupians will have a family member who already has lupus or may develop the disease.1 And, while lupus does develop in people with no family history of the disease, other autoimmune disease are often present in some family members, which may make them predisposed to developing lupus.2
Lupus affects every aspect of life, whether or not there is a family history of lupus. Learning about lupus and how to manage the disease is definitely a family affair. According to the Lupus Foundation of America Caregiver Toolkit, the following are some things that you should pay attention to:3
Education
Ideally, the best place to get started in tackling lupus as a family, is to know it. Education is the key. While learning about lupus is ongoing, because new research is improving our understanding of lupus everyday, getting a basic understanding is an important foundation.
At the Greater Ohio Chapter, we offer a New Patient Education Class monthly. This class is offered
virtually, and it is open to any lupus patient (newly diagnosed or diagnosed years ago), family and friends. This is a basic “lupus 101” class. In this class, we cover what lupus is and its symptoms, who tends to develop it, the burden of the disease (including financial issues and impacts on the ability to perform daily activities), how it is diagnosed and treated, and how to manage the disease.
We also produce several educational summits throughout the year. These in-person and virtual conferences are wonderful opportunities to learn from lupus experts on a variety of topics. We have an extensive archive of past conferences and educational videos.
If you prefer written information, we have that too! We can mail an information packet, which has information about lupus and also about our chapter’s resources and services. You can also submit questions online, and a patient navigator will be sure to contact you.
The Greater Ohio Chapter patient navigators are great sources of education. We give information over the phone, by email, by mail, and sometimes by text too. Every patient navigator is ready to answer your questions about lupus. If we don’t know the answer, we will do research to find it. In addition to recommending our New Patient Education Class, we can also suggest articles and past recordings of
summits and webinars.
Be Aware
Lupus is unpredictable and impacts each individual lupus patient differently. Its impact can vary daily, both physically and emotionally. There can be days of low or no disease activity and symptoms (remission), days of increased disease activity and symptoms (flares), and days that are in between. Knowing how lupus impacts the lupus warrior, as well as the signs and symptoms that a flare or a new medical issue is occuring, will help the lupus patient and the family stay on top of the disease and get medical help in a timely manner.
Be Open to Change
Being aware of how the lupus patient is feeling also helps the family understand that plans and activities may need to be changed, and that a lupus patient may need more or less help. It is important that lupus patients and caregivers frequently communicate, so that it is easier to make necessary changes. And, if the lupus patient is working, keeping colleagues informed is also key to making adjustments at the workplace.
These are some tips to help the lupus patient and their family adjust:4
• Maintain a manageable schedule with time for breaks.
• Reassign household responsibil-
ities as needed.
• Ask friends or extended family members to help around the house when possible
• If the lupus patient doesn’t feel up to doing an activity, saying “no” is okay.
• If there are children, talk to them about lupus and how it may affect life at home.
Be Emotionally Considerate
When dealing with lupus, feelings of sadness, helplessness, and uncertainty about the future are very common. These feelings are a normal part of living with a chronic illness, both for the patient and the caregivers. Understanding this can help the whole family be thoughtful, caring, and patient with one another as they all navigate the lupus journey.
In addition to supporting each other, finding outside support can be useful too:4
• Staying connected socially can help you put lupus in perspective and build a support system
• Make sure you spend time doing activities you enjoy with other people, and identify family members and friends you can turn to when you need to talk to someone.
• Individual therapy can help you cope with issues like depression and anxiety
• Couples therapy can help you and your partner communicate as you both adjust to your diagnosis
• Attend a support group. The Greater Ohio Chapter has many support groups throughout the state that meet in person or virtually.
There are many resources available to help the whole family learn to live and manage lupus. You are not alone. If you have questions or would like information, please contact the Greater Ohio Chapter
office at 1 (888) NO-LUPUS, 440-717-0183, or info@lupusgreaterohio.org. We are happy to help!
1Lupus facts and statistics. Lupus Foundation of America. https:// www.lupus.org/resources/ lupus-facts-and-statistics
2Pons-Estel GJ, Alarcón GS, Scofield L, Reinlib L, Cooper GS. Understanding the epidemiology and progression of systemic lupus erythematosus. Semin Arthritis Rheum. 2010 Feb;39(4):257-68. doi: 10.1016/j.semarthrit.2008.10.007. Epub 2009 Jan 10. Review.
3Caregiver Toolkit. Lupus Foundation of America. https://lupusgreaterohio.org/ find-resources/toolkit-forcaregivers/
4Coping With Lupus: A Guide. Lupus Foundation of America. https://www.lupus.org/resources/ coping-with-lupus-guide
PATIENT STORY
Heather
and Sharon Ward Lupus Story
Daughter and Mother
I was always sick when I was younger. The doctors told my mom that I might get asthma due to sinus issues. We moved to Las Vegas when I was 16. The doctors out there kept telling me there was nothing wrong with me. I felt like I was crazy. Dr. Shreck did a chest x-ray which found my thymus gland was big. I had my thymus removed in 2002. It was the size of a baseball. Thank God, it was not cancer.
The cancer doctor told me in 2008 that I needed to be tested for lupus and rheumatoid arthritis because a study showed that in 4-6 years, a person has either one or has one or the other. My thought was which one was worse? I looked them up because I didn’t know what they were.
In July of 2008, I was diagnosed with SLE (lupus). My son was five, and my daughter was not yet two. I followed up with my primary care doctor, and he referred me to a rheumatologist. That doctor wouldn’t help me. He said, “I never
Heather’s Story
Ransom
had a patient who had it due to surgery.” I yelled at him and went home crying. I didn’t want my children to grow up without a mom.
Due to this, and my Dad being sick, we came back to Ohio. I have an amazing team of doctors at University Hospitals of Cleveland. In 2011, I was diagnosed with myasthenia gravis, another autoimmune disease.
I keep fighting and advocating for everyone and myself. The best part is that I am reaching one of my goals and that is to see my daughter graduate, and I was able to see my son graduate. I have an amazing support team. My parents were always by my side; as well as my kids, boyfriend, and friends. Now, I am here to help my mom through this journey.
“My parents were always by my side; as well as my kids, boyfriend, and friends. Now, I am here to help my mom through this journey.”
My journey with lupus is not like my daughter’s, Heather Ransom. I was never sick, other than colds, chicken pox, and having my tonsils removed. I married at the age of 20 and had two children and no miscarriages. I was, for the most part, healthy.
When I was 12, my Dad got sick. We discovered he had developed blood clots in 1965. Then in 1983, he developed high blood pressure and had a mild stroke. The high blood pressure damaged his
Sharon’s Story
kidneys. I helped my Mom take care of him until he passed away in 1988. Then my Mom got sick in 1992 with lung cancer. I took care of her until she died in 1994.
After this, my daughter Heather became sick. She had a growth the size of a baseball. It was her thymus gland. They took it out in 2002. About six years later, she was diagnosed with lupus and later on with MG (myasthenia gravis). I helped her as much as possible.
Then, in 2008, my husband got sick. For 15 years, I took care of him. In the end, he got cancer. The cancer was in his lungs, neck and spots in the kidneys. He died in 2023.
I was used to being a caregiver until I got sick around December, 2023. I could not walk without having a breathing problem.
We went to urgent care, and the doctor said to go to the ER. At the ER, the doctor said I had a blood clot in the left leg, and blood clots had broken off and were in both lungs. I was tested for lupus with the blood clots and I tested positive. This was February, 2024 at the age of 71.
I was not upset when I received the diagnosis. Most people like my daughter have been fighting this disease from a young age. I was healthy most of my life.
My heart goes out to all of the young warriors who have been fighting this terrible disease. Keep on fighting - a cure will come!
“My heart goes out to all of the young warriors who have been fighting this terrible disease.”
PATIENT STORY
Kiara and Moses Graham Lupus Story
Father and Daughter
Hi, my name is Moses Graham, and I have lupus. I originally discovered I had it when I was in my 40s. I just got home from working two consecutive shifts at the post office
and pulled into my driveway. I couldn’t get out of the car due to my joints being so stiff. I had to crawl out of my vehicle and have my wife assist me to walk up the
Moses’ Story
driveway into our home. I didn’t know what was wrong, so I went to the doctor and they ran some tests. A week after my appointment, I got a request from the doctor for a follow-up slated to be a month later. I thought I had a fatal condition, and nerves got the best of me, so I called the doctor’s office. After some back and forth, they revealed to me that I had lupus.
The whole experience was a huge transition in my daily life. I had to make modifications, such as avoiding prolonged time in the sun to avoid flare-ups and taking daily medication to help ease symptoms. Some days are harder than others. There are many aches and pains associated with lupus. The pain for me primarily resides in the joints and certain muscles. This can make daily life cumbersome, but it’s possible to adjust and still have a fruitful life.
When I found out my daughter had lupus, it had a major effect on her life, and she did not adjust well. I tried talking to her and telling her the do’s and dont’s when you struggle with our condition.
I wanted to make sure she knew that you can still have a great life as long as you make an effort to adjust. With the pain that comes from lupus, some days you just can’t get up and go, even if you want to. The biggest thing that I had to deal with was avoiding stress. This applied to my daughter also. We had many conversations, focusing on how to let minor things go and not stress you out. I turned 67 recently, and although it’s difficult at times, lupus is a liveable condition. What I want others with lupus to take away from my story is to try to find a certain peace of mind and not let the fact that you have lupus deter you from living a great life.
When I was a freshman in high school, I began experiencing symptoms that were difficult to explain and even harder to endure. The fatigue, the joint pain, the flares—they all started to increase rapidly, making it impossible to ignore. With the support of my family, I sought help from a rheumatologist at Children’s Hospital. After several trials and errors, I was diagnosed with lupus. At just 13 years old, I found myself hospitalized—a moment that was not only terrifying but also life-changing. That experience introduced me to a new reality, one that would
challenge me physically, mentally, and emotionally.
Lupus, an autoimmune disease that causes the immune system to attack healthy tissues, is often unpredictable. It affects each individual differently, which can make navigating daily life feel like walking through a minefield. Some days are better than others, but the uncertainty of the disease has forced me to grow up fast and learn how to manage my health with care and discipline.
One of the biggest blessings in my
journey has been my dad. He also lives with lupus, and having him by my side has made a tremendous difference. Whenever I experience a new symptom or flare-up, I lean on him. We compare notes, symptoms, and coping strategies. His wisdom, built from years of managing the disease himself, makes my path a little easier to walk. More than that, his strength is something I admire deeply.
Now that I’m older, I recognize that my father is the strongest man in the world. Not only has he endured the challenges of lupus,
Kiara’s Story
but he’s also survived cancer, heart attacks, and a stroke. Despite all of that, he remains a survivor— resilient, optimistic, and always pushing forward. His strength reminds me every day that I, too, can survive and thrive despite the obstacles lupus throws my way.
While lupus has shaped my journey, it hasn’t defined my destination. I graduated from Pickerington Central High School at just 15 years old in 2013—a proud moment that set the tone for the drive and determination I carry today. Since then, I’ve become the founder of KG Selph Made Tax Services, where I help individuals and families take control of their financial futures. I also launched my own mobile laundry service 614 Mobile Laun-
work, my energy, my relationships, and sometimes even my mental health. But it has also shaped me into a person who is compassionate, understanding, and determined. I’ve learned to advocate for myself, to rest when I need it, and to celebrate every step forward— no matter how small.
This disease does not define me, and it certainly doesn’t control me. With love, support, and the unshakable example my dad has set, I know I can keep moving forward. Together, we remind ourselves and others. As you read our stories, I hope my father’s and my stories can bring a positive impact on your lupus journey.
“While lupus has shaped my journey, it hasn’t defined my destination.”
- Kiara Graham
dry Services, serving both personal and professional clients with reliable, same-day care. And I’m not stopping there—I’m currently working toward becoming a licensed realtor by December 2025.
Despite the challenges I’ve faced, I’ve chosen to lead a life full of purpose, ambition, and faith. I’ve built businesses from the ground up while managing my health, and I’ve remained committed to inspiring others along the way. Whether it’s through financial literacy, entrepreneurship, or community service, my mission is to help others rise above their circumstances—just as I continue to do.
Living with lupus is not easy. It affects every part of my life—my
Research, News, & Updates ACTION ALERT!
TELL YOUR STATE SENATOR TO REINSTATE LUPUS IN THE OHIO BUDGET!
This is an urgent request!!!
The Ohio House of Representatives has removed lupus funding from the budget. This critical funding allows the Lupus Foundation of America, Greater Ohio Chapter to provide many of its programs and services. Without this funding, the Lupus Foundation of America, Greater Ohio Chapter will face a critical shortage which will result in decreased patient services, reduced funding for food, medical, and transportation assistance, and economic instability for patients
that rely on the Lupus Foundation of America, Greater Ohio Chapter’s support. It may even result in the closure of the Chapter.
The budget is now in the hands of the Ohio Senate. Please take a moment to ask the Ohio Senate to reinstate lupus in the Ohio Budget. It is imperative that we let Ohio’s leadership know the importance of keeping lupus in the public health agenda. Please show your support by filling out the form to the right and taking action!
Please contact our office if you have any questions at 1 (888) NO-LUPUS. Thank you for helping create a better future for lupus patients here in Ohio!
Sincerely,
The Staff at the Lupus Foundation of America, Greater Ohio Chapter
Take Action!
Protecting the Future of Lupus Research, Programs, and Care
This article was originally published on April 9, 2025. It was updated on April 25, 2025 to include the Lupus Foundation of America's response to the Trump administration's proposed cuts to federal health agencies in the draft Fiscal Year 2026 budget.
In recent weeks, the Administration and Congress have made significant changes that threaten to negatively impact vital lupus research, drug development and public health initiatives, including the reorganization and significant staff reductions at the U.S. Department of Health and Human Services (HHS) and cutting the Lupus Research Program at the Department of Defense (DoD). The Lupus Foundation of America is profoundly concerned by these changes and has been working on every front—on behalf of all those impacted by lupus - to protect and strengthen these critical federal programs that support the lupus community. With funding and access to care at risk, our advocacy has never been more urgent - or more relentless.
Here are a few of the ways we’re standing with the lupus community and leading the charge:
Voices in Action
• LFA Statement: We issued a public statement calling on Congress and the Administration to preserve and strengthen essential lupus programs. Read
it here: https://bit.ly/3RQbLJG.
• Action Alert: Our current action alert empowers individuals to contact their members of Congress directly. These voices matter—Congress created these programs, and only Congress can ensure they continue. Take action now: https://bit.ly/3EPGdkw.
• 2025 National Lupus Advocacy Summit: Hundreds of lupus warriors and medical experts will head to Capitol Hill in May to speak directly with lawmakers. Those unable to attend in person can still make a powerful impact from home by joining our virtual advocacy effort. Become an advocate and help amplify our message nationwide: https://bit.ly/3Zf60Jy.
• Trump Administration Proposed Cuts to Federal Health Agencies (added April 25, 2025): In partnership with health care organizations across the country, we urged Congressional leaders to oppose the Administration’s draft Fiscal Year 2026 budget for the Department of Health and
Human Services, which could lead to devastating cuts to lupus and other health and research programs across government agencies, including the National Institutes of Health, the Centers for Disease Control and Prevention and others. Read the letter: https://bit.ly/4jWvBj0.
On the Front Lines in Washington
We’re actively engaging with:
• Congress, through champions in the Lupus Caucus and key committees, to protect funding for research and education programs at the National Institutes of Health (NIH) and Centers for Disease Control and Prevention (CDC) and public health programs like Medicare, Medicaid, and more.
• Federal agencies, like the Food and Drug Administration (FDA) and Centers for Medicare and Medicaid Services (CMS) to ensure lupus-related programs stay strong and lupus treatments are accessible.
• The Administration, to influence budget and policy decisions
that affect the lupus community. Leading Powerful Coalitions The LFA leads and participates in multiple coalitions that unite the patient advocacy community around key issues. These active coalitions represent hundreds of patient groups working together for shared goals. Together, we’re:
• Fighting for research funding at the National Institutes of Health, Centers for Disease Control and Prevention (CDC), Department of Defense (DoD) and the FDA.
• Coalitions: NIAMS Coalition (co-led by the LFA), Research!America, Ad Hoc Group for Medical Research, Defense Health Research Consortium
• Protecting access to affordable health care and treatments.
• Coalitions: National Health Council (board member and active committee member)
• Supporting engagement in clinical trials from all those impacted by lupus and drug development.
• Coalitions: Alliance for a Stronger FDA
• Safeguarding Medicare and Medicaid coverage and access.
• Coalitions: MapRx (founded and led by the LFA), Partnership to Protect Coverage
• Elevating vaccine access and other issues for immunocom-
STUDY PARTICIPANTS NEEDED
Cincinnati Children’s Hospital is currently recruiting for multiple lupus studies. As an autoimmune disease, lupus can affect many different body systems due to a patient’s immune system having trouble telling the difference between healthy tissue and foreign substances. Two exciting studies focusing on different systems are highlighted below, one for lupus nephritis and another for lupus with brain involvement.
The Pediatric Lupus Nephritis
Mycophenolate Mofetil (PLUMM) Study focuses on lupus nephritis, when lupus affects the kidneys. Standard treatment for most persons newly diagnosed with lupus nephritis (LN) includes steroid plus oral mycophenolate mofetil (MMF). The safety and usefulness of MMF for the treatment of LN has been evaluated in adults and some children. When taken orally, MMF is quickly broken down in the body to mycophenolic acid (MPA). MPA
helps to calm the immune system and decrease the inflammation of the kidneys. More MPA in a patient’s system is associated with better immune response and less inflammation. However, each patient processes MPA differently in the body, and this is thought to be one of the reasons that MMF does not work as well for LN in some people. Other reasons include differences in the amounts of certain blood proteins, lowered kidney function, and changes in liver function. Studies in adults with LN have shown people with LN have a 36% better response with MMF if the medication is dosed based on the amount of MPA in the blood rather than the standard dosing method based on a patient’s height and weight.1, 2
Funded by the National Institutes of Health, Drs. Hermine Brunner and Prasad Devarajan from Cincinnati Children’s Hospital Medical Center are conducting a clinical
promised individuals.
• Coalitions: Immunocompromised Collaborative (co-founded and steering committee member)
Our team is leading efforts, at the table, in the meetings, and on the front lines - every single day. Bottom line: We are doing everything in our power to protect lupus research, programs, and access to care. And we’re not backing down.
Let’s keep the momentum going - your voice and support matter now more than ever.
This post was originally published on this site: https://bit.ly/3ESH57E.
trial to look at 2 different methods for dosing MMF. The study would like to learn if one way is better at reaching the best possible levels of the drug MMF in the body. In this clinical trial, participants will be randomly assigned to one of the 2 treatment strategies (standard MMF dosed by body-weight or personalized dosing of MMF based on a patient’s MPA levels). The study is blinded so that the doctors and participants will not know which patients are in which groups. The study goal is to determine whether doctors should use personalized-dosing strategies for MMF use in children with LN going forward to achieve better outcomes for children with LN.
The study will be conducted at twenty children’s hospitals across the United States. Newly diagnosed lupus nephritis patients between the ages of 8 and less than 17 years old who are being treated with MMF for their lupus nephritis are eligible. Study participants will be part of the study for 11 visits over the course of one year, during which they will receive MMF free of charge. Participation will include: blood samples collected by fingersticks (to test MPA levels), collection of medical information, monitoring of patients’ study drug usage and side effects, and completion of questionnaires about patient wellbeing. Participants must have a smartphone to join the study as messages will be sent to remind them to take their MMF daily.
The study is expected to last five years with 105 participants total across twenty sites. The duration of study may be extended, and additional sites may be added depending on the rate of enrollment. If you would like more information, please email plumm@cchmc.org. Patients are reimbursed for their time and effort.
The Vascular Pathophysiology in CNS SLE: The Blood-CSF Barrier study aims to learn more about how lupus affects the brain. Often, organ damage from lupus results from breakdown of blood vessels. And in the brain, blood vessels have special barriers between the blood and brain tissue. The best-known barrier is made up of specialized cells that are tightly connected at the surface of small blood vessels that control how substances can go between the blood and the brain tissue. This
is called the blood-brain-barrier (BBB). The BBB is a special tissue layer around the brain protecting it from infections or diseases in other parts of the body. Using brain imaging, researchers have shown that the BBB is leakier in lupus patients compared to healthy persons. Experiments in mice suggest that substances that should stay in the blood can enter the brain, even when the BBB appears to be working properly. These experiments suggest that there might be another way for materials in the blood to leak into the brain.
The brain includes fluid, called cerebrospinal fluid, or CSF. CSF surrounds the surface of the brain and fills spaces near the center of the brain called ventricles. It has several functions in the brain, most notably acting as a cushion for brain tissue. Inside the ventricles is a structure floating in the CSF called the choroid plexus that has a large amount of blood vessels. These blood vessels don’t have a BBB and are naturally leaky but they are encased in the choroid plexus by a specialized layer of cells that substances in the blood must pass through to get into the CSF. This is known as the blood-CSF-barrier. Once blood contents enter the CSF in the ventricles through this layer, they can easily enter brain tissue that surrounds the ventricles. So, if there is breakdown of the
blood-CSF-barrier, harmful substances from the blood can make their way into the brain tissue surrounding the ventricles.
In multiple sclerosis, which is another disease that affects the brain, some imaging shows that there is damage mainly to the brain tissue that surrounds ventricles, and the damage is worst at the ventricle surface and decreases with distance from the ventricle. This study wants to test the idea that lupus, like multiple sclerosis, can also affect the brain through a leaky blood-CSF-barrier. We will use MRI advanced imaging methods to measure blood flow and leakage into the CSF in the choroid plexus. We will also use imaging methods to measure a variety of tissue and blood vessel properties around ventricles in both patients with lupus and multiple sclerosis to examine the blood-CSF-barrier. If we find blood-CSF-barrier involvement for lupus, it could open new ways to study lupus in the brain and help development of new treatments.
This study is conducted only at Cincinnati Children’s Hospital with target participation of 20 people with active lupus, 20 people with multiple sclerosis, and 40 healthy controls in the age range of 12 to 25 years. There is one visit for this study lasting up to 3 hours. Each participant will undergo an MRI of their brain as part of the study, lasting about 1 hour. They will also complete a computer-based battery of cognitive tests, called PedANAM, lasting 30 to 40 minutes. Participants will be compensated $150.00 for their participation. For more information, please contact: Cat Robben (513) 636-7299.
1. GMN Daleboudt Lupus 2012; W Kittanamongkolchai, Kidney International 2013 2. Sagcal et al: Semin Arthritis Rheum 2011; 20140:307-313.
COLUMBUS, OH - 06/28/2025
- 06/28/2025
GOLF OUTING
MONDAY, JUNE 9TH, 2025
39000 SIGNATURE DR, SOLON, OH 44139
Enjoy a day of golf with your friends and family on Monday, June 9th, from 10:00 AM - 5:30 PM . Win prizes and unique auction items while supporting a great cause! With YOUR help, LFA, GOC can continue to assist people a ected by lupus through programs of research, education, and advocacy.
Why Lupus Happens: The Roles of Your
Genes & Environmental Factors
Authors: Qi Wang, MD & Bismah Basharat, MD Rheumatology
at MetroHealth Hospital/Case Western Reserve University
Background
Systemic lupus erythematosus (SLE), or lupus for short, is a complex, long-term autoimmune disease. In lupus, the immune system- normally your body’s defense against infections- becomes confused and mistakenly attacks healthy tissues. This can cause inflammation and damage in many parts of the body, including the skin, joints, kidneys, heart, lungs, and brain.
Doctors and researchers believe that lupus develops in individuals who are born with certain genetic traits that make their immune system more likely to become overactive. Then, when those individuals are exposed to certain environmental triggers - like sunlight, infections, or hormonal changes
- the immune system can shift into overdrive.
Although there is a lot we don’t fully understand, groundbreaking research into genetics and the biology of lupus is helping pave the way for better diagnostic tests, personalized treatments, and ultimately, prevention strategies [1, 12].
Clinical Presentations
Lupus can look very different from one person to the next. Some people may have just a few symptoms, while others may have many. Patients might experience fever, fatigue, skin rashes, mouth and/ or nose sores, hair loss, joint pain, chest pain, and decline in renal function during a lupus flare [2]. Other complications include low
red blood cell counts (anemia), low white blood cell counts - especially neutrophils, which help fight infections - neurological symptoms like headaches or confusion, and pregnancy-related concerns such as miscarriages. One lab clue that helps doctors diagnose lupus is the presence of antinuclear antibodies (ANA), which are found in nearly all people living with lupus.
Genetic Factors
We know that genetics can play a part in who develops lupus. Researchers have discovered nearly 200 areas in our DNA that are linked with a higher risk of the disease [3]. Thanks to new tools and technology, they’re learning more about how these genes act inside different immune cells - and how certain changes can cause the
immune system to become overactive, leading to lupus or other autoimmune conditions.
How Genetics is Helping Us Discover New Treatments
One of the most exciting advances has been the development of anifrolumab, a medication approved in 2021 for treating moderate to severe lupus. Anifrolumab specifically blocks type I interferon signaling - a key immune pathway implicated through genetic studies [4].
Other promising therapies currently in clinical trials, like deucravacitinib [5] and iberdomide [6], have been developed based on insights into lupus genetics. These treatments aim to offer more targeted, personalized options for patients in the near future.
Environmental Factors
While genetics play a role in lupus, environmental factors are also very important. Research shows that environmental exposures may contribute to almost 60% of lupus cases [7]. Things like dust exposure, air pollution, smoking, sleep habits, and diet can all influence a person’s risk of developing lupus.
For example, breathing in silica dust (which can happen with certain jobs) has been linked to a higher risk of autoimmune diseases, like lupus [8]. A Canadian study also found that living in areas with higher levels of air pollution was associated with an increased risk of developing lupus [7]. Smoking is another major factor that is associated with increased risk of lupus [9].
On the positive side, studies have shown that a healthy lifestylewhich incorporates measures such as avoiding smoking, maintaining
a healthy weight, regularly exercising, and eating well - is linked to a lower risk of lupus [10]. When it comes to alcohol, the research isn’t as clear. Moderate drinking might actually lower lupus risk slightly, but the evidence isn’t strong enough to recommend it for prevention.
Some people worry about vaccines causing lupus, but current studies do not support this. However, some medications, like hydralazine, can cause a form of lupus called drug-induced lupus. Fortunately, drug-induced lupus is usually more limited and tends to have a better outcome than regular lupus.
Finally, certain infections, either earlier in life or right before lupus starts, may affect the immune system in a way that could trigger lupus in some people [11].
A New Frontier: How the Environment Alters Our Genes
One of the most exciting areas of research today looks at how environmental exposures change the epigenome - the system that regulates how our genes are turned on or off.
Turns out - the epigenome is dynamic and responds to factors such as diet, pollution, smoking, and stress! Changes in DNA and other epigenetic mechanisms influence whether certain genes
become active in promoting autoimmunity [13].
This is critical, because it suggests that environmental factors not only trigger lupus but could potentially be modified to prevent or delay disease onset [13]. Our growing understanding of how environmental and dietary factors interact is opening up new possibilities for prevention and early intervention.
Conclusion
Lupus is a complex condition, and it isn’t caused by just one thing. Right now, science can explain only part of the full picture - there’s still a lot we’re learning about autoimmune conditions.
But the good news is that there are things we can focus on today. Both doctors and patients can work together to manage reversible factors like maintaining a healthy lifestyle, which may help lower the risk of developing lupus and other autoimmune diseases.
Looking ahead, research is moving quickly. In the future, we hope to better understand how genes and environmental exposures interact, and how we can use that
information to personalize careidentifying people at risk earlier and creating more individualized treatment plans to help patients live healthier, fuller lives.
Reference list
1. Ghodke-Puranik, Y., M. Olferiev, and M.K. Crow, Systemic lupus erythematosus genetics: insights into pathogenesis and implications for therapy. Nat Rev Rheumatol, 2024. 20(10): p. 635-648.
2. Fortuna, G. and M.T. Brennan, Systemic lupus erythematosus: epidemiology, pathophysiology, manifestations, and management. Dent Clin North Am, 2013. 57(4): p. 631-55.
3. Woo, J.M.P., et al., The role of environmental exposures and gene-environment interactions in the etiology of systemic lupus erythematous. J Intern Med, 2022. 291(6): p. 755-778.
4. Furie, R., et al., Anifrolumab, an Anti-Interferon-α Receptor Monoclonal Antibody, in Moderate-to-Severe Systemic Lupus Erythematosus. Arthritis Rheumatol, 2017. 69(2): p. 376-386.
5. Morand, E., et al., Deucravacitinib, a Tyrosine Kinase 2 Inhibitor, in Systemic Lupus Erythematosus: A Phase II, Randomized, Double-Blind, Placebo-Controlled Trial. Arthritis Rheumatol, 2023. 75(2): p. 242-252.
6. Hu, Y., et al., Lineage-specific 3D genome organization is assembled at multiple scales by IKAROS. Cell, 2023. 186(24): p. 5269-5289.e22.
7. Kuo, C.F., et al., Familial Aggregation
of Systemic Lupus Erythematosus and Coaggregation of Autoimmune Diseases in Affected Families. JAMA Intern Med, 2015. 175(9): p. 1518-26.
8. Miller, F.W., et al., Epidemiology of environmental exposures and human autoimmune diseases: findings from a National Institute of Environmental Health Sciences Expert Panel Workshop. J Autoimmun, 2012. 39(4): p. 259-71.
9. Chua, M.H.Y., et al., Association Between Cigarette Smoking and Systemic Lupus Erythematosus: An Updated Multivariate Bayesian Metaanalysis. J Rheumatol, 2020. 47(10): p. 1514-1521.
10. Choi, M.Y., et al., Association of a Combination of Healthy Lifestyle Behaviors With Reduced Risk of Incident Systemic Lupus Erythematosus. Arthritis Rheumatol, 2022. 74(2): p. 274-283.
11. Qiu, C.C., R. Caricchio, and S. Gallucci, Triggers of Autoimmunity: The Role of Bacterial Infections in the Extracellular Exposure of Lupus Nuclear Autoantigens. Front Immunol, 2019. 10: p. 2608.
12. Kwon, Y. C., Chun, S., Kim, K., & Mak, A. (2019). Update on the Genetics of Systemic Lupus Erythematosus: Genome-Wide Association Studies and Beyond. Cells, 8(10), 1180. https://doi.org/10.3390/ cells8101180
13. Kamen D. L. (2014). Environmental influences on systemic lupus erythematosus expression. Rheumatic diseases clinics of North America, 40(3), 401–vii. https://doi. org/10.1016/j.rdc.2014.05.003
The Double Burden: Caregiving with Lupus
The focus of this magazine has been on lupus and genetics. As discussed, lupus has a clearly established genetic component. This means that it is possible that multiple members of a family can have lupus and/or other autoimmune diseases. While researchers are still trying to understand why some family members do get lupus and others do not, one thing is obvious. Having multiple autoimmune diseases in one family can put a strain on the role of the caregiver. Often, this means that caregivers are also patients, presenting a double burden.
For those living with lupus, even the simplest days can present significant challenges. Now, imagine layering onto this personal struggle the profound responsibility of caring for another individual with lupus or another autoimmune disease – a child, a parent, a spouse, or a friend. This is the reality for countless individuals: navigating the unpredictable terrain of lupus while simultaneously shouldering the demands of caregiving. It’s a
delicate balancing act, a testament to resilience, but also a potential recipe for immense physical, emotional, and mental strain.
Lupus itself is a complex and often invisible illness. Its symptoms can fluctuate wildly, ranging from debilitating fatigue and joint pain to cognitive dysfunction (often referred to as “lupus fog”), skin rashes, and organ involvement. Managing these symptoms requires constant vigilance, careful medication regimens, regular doctor’s appointments, and often, significant lifestyle adjustments. Adding the responsibilities of caregiving – tasks that can include physical assistance, emotional support, managing appointments, and household chores – can quickly overwhelm the already taxed resources of someone living with lupus.
The physical toll of caregiving is significant even for those in robust health. Lifting, bending, and constant activity can exacerbate the joint pain and fatigue that are hallmarks of lupus. The unpredicta-
ble nature of lupus flares can make it incredibly difficult to maintain a consistent caregiving schedule. On days when pain is severe or fatigue is overwhelming, the ability to provide adequate care can be severely compromised, leading to feelings of guilt and inadequacy. This is a stark contrast to the societal expectation that caregivers should be endlessly available and self-sacrificing.
Beyond the physical challenges, the emotional and mental burden of caregiving while living with lupus can be profound. Lupus can bring with it anxiety and depression, stemming from the chronic nature of the illness, the uncertainty of flares, and the impact on one’s quality of life. Layering the emotional demands of caregiving – the worry for the person being cared for, the potential for emotional distress, and the constant need to be present and supportive – can amplify these feelings. The isolation that can sometimes accompany chronic illness can be further exacerbated by the
demands of caregiving, leaving little time or energy for social interaction and personal support networks.
Moreover, the cognitive difficulties associated with lupus can make the organizational aspects of caregiving particularly challenging. Remembering appointments, managing medications for both oneself and the person being cared for, and navigating complex medical information can become overwhelming when dealing with “lupus fog.” This can lead to increased stress and anxiety, further impacting both the caregiver’s well-being and the quality of care they are able to provide. The constant juggling act requires meticulous planning and often, the development of elaborate coping
mechanisms to manage the dual demands.
Finding Strength and Seeking Support
Despite the significant challenges, many individuals living with lupus find profound strength and purpose in their role as caregivers. The love and connection they feel for the person they are caring for can be a powerful motivator, driving them to push through their own limitations. However, this dedication should not come at the expense of their own health and well-being. Self-care is not a luxury for caregivers with lupus; it is a necessity.
Prioritizing self-care can take many forms. It might involve scheduling regular rest periods, even if
they are short, to combat fatigue. Gentle exercise, when possible and as tolerated, can help manage pain and improve mood. Maintaining a healthy diet, rich in anti-inflammatory foods, can also support overall well-being. Crucially, actively seeking support is paramount. This can include:
• Building a Support Network: Connecting with other caregivers, particularly those who also live with chronic illnesses, can provide invaluable emotional support, practical advice, and a sense of not being alone. Online forums and support groups can be a lifeline for those who may have difficulty leaving their homes.
• Communicating Needs: Openly communicating needs and limitations to family members, friends, and even the person being cared for (if appropriate) is essential. Asking for help is not a sign of weakness but a proactive step in ensuring both the caregiver’s and the care recipient’s well-being.
• Seeking Professional Help: Therapists and counselors can provide a safe space to process the emotional challenges of caregiving and living with a chronic illness. Occupational therapists can offer strategies for managing daily tasks and conserving energy.
• Exploring Respite Care: Respite care, which provides temporary relief for caregivers,
can offer much-needed breaks to rest and recharge. This can range from a few hours of help from a volunteer to a short stay in a care facility.
• Leveraging Technology: Utilizing technology, such as medication reminder apps, shared calendars, and online grocery delivery services, can help streamline tasks and reduce cognitive load.
Healthcare providers also play a crucial role in supporting caregivers with lupus. Recognizing the dual demands and offering tailored advice and resources is essential. This might include connecting caregivers with relevant support organizations, providing guidance on energy conservation techniques, and addressing
the specific challenges posed by lupus symptoms in the context of caregiving.
Living with lupus is a journey filled with unpredictable twists and turns. Adding the responsibility of caregiving to this journey requires immense strength, resilience, and a commitment to self-advocacy. While the challenges are significant, recognizing the unique needs of these individuals and providing adequate support can make a profound difference, allowing them to continue providing care while also safeguarding their own precious well-being. The double burden is heavy, but with the right support and a focus on self-care, it is a burden that can be navigated with greater strength and grace.
LFA,GOC BLOG & PODCAST
My Lupus Living Room
If you would like to share your story, or have a topic you think would benefit lupus patients, contact our show’s producer Alex by email: Alex@lupusgreaterohio.org
Check out our channel: @lupusgreateroh
Episode 44 - The Year Ahead!
Suzanne & Alex sit down to lay out what the chapter has planned in the coming year! The Cleveland & Columbus walk dates, our next educational program, support groups, our minority retreat and so much more!
Episode 45 - Lifestyle Changes To Help Manage Your Lupus
Suzanne sits down with Rick Delarosa, CTSP to discuss how lifestyle changes can aid lupus patients in their journey. Rick discusses healthy sleep habits, exercise, and the pillars of a healthy diet.
Episode 46 - Hair Stylist Educates Clients About Lupus While Behind The Chair
Michelle Lamb joins Suzanne to talk about how she educates her community about various health related topics while behind the chair! As the owner of Hairport Beauty & Barber Studio in Cincinnati, Michelle saw a need for more informal education and awareness. During the height of the pandemic, she saw an opportunity and seized it!
Episode 47 - Finding Beauty in Having Lupus
Kim opens up to Suzanne about her journey with lupus including finding purpose, and how she uses beauty pageants as a platform for change!
Lupus Night Light
Our blog, Lupus Night Light, is a place where we share stories and practical advice from patients that they have learned along their lupus journeys. You will find stories of triumph, hardship, and everything in between. It is meant to be a cathartic journey for both the contributors and readers alike.
: Jason Graves, Calista Botta, Teresa Casey, Michele O’Rourke, Diane Dektas, Kathryn Peters, Victoria Purnell, Victor Ceja
Email Sign-Up
Stay up-to-date on everything we’re doing by joining our mailing list. You will receive a monthly newsletter, support group reminders, Walk to End Lupus Now® updates, research news, and more. Sign up now: lupusgreaterohio.org/stay-informed
Text Message Notifications
Text “NOLUPUS” to 833-4490800, complete your contact information, and be sure to opt in to receive important lupus updates directly to your mobile device.
Get Social
Join us on our social media platforms to stay connected: lupusgreaterohio.org/stay-informed/ get-social
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Become a Member
One-year: $25 Lifetime: $200 lupusgreaterohio.org/get-involved
GET INVOLVED
Host a Third-Party Event
Do you have an idea to support the mission? Give us a call at the office to discuss and plan your own fundraising activity to benefit the LFA, GOC. Here are a few examples of virtual events that people have coordinated in the past: Pampered Chef Party, Online Auction, Charity Video Game Tournament.
If you are interested in hosting a third-party event, reach out to us for our official guidelines and an application.
Advocacy
Each year, the National Lupus Advocacy Summit brings together the lupus community to pursue a collective vision of a world without lupus. In addition, we help to ensure
there is a cohesive voice heard in Washington, D.C. that ensures the lupus agenda is at the forefront of the legislature. This year’s National Lupus Advocacy Summit will take place May 4-6, 2025 in Washington, DC. If you are interested in participating, please visit lupus.org for more information.
We invite you to register to be a lupus advocate in Ohio. Our current initiative is to keep lupus in the state budget for the new biennium. Much of the educational and support programming produced by the LFA, GOC over the past two years has been a direct result of the funding provided by the state of Ohio and the Ohio Department of Health. It is imperative that we let Ohio’s leadership know the importance of keeping lupus in the public health agenda. lupusgreaterohio.org/ get-involved/advocate
WAYS TO GIVE
Traditional
• Checks
Please make checks payable to the Lupus Foundation of America, Greater Ohio Chapter, and mail them directly to:
12930 Chippewa Road, Brecksville, Ohio 44141.
• Credit Card + PayPal
Fill out the online donation form or call the office.
• Facebook Fundraisers
• Instagram Stories
In Honor of
• Memorial Donation
• Tribute Donation
Through
Your Job
• Employer Matching Gift Program
Ask your employer if they match charitable contributions made by their employees.
• Combined Federal Campaign CFC #51890
Investing
• Stock or Other Securities
• Life Income Plans Pooled Income Fund Charitable Remainder Trusts
• Creating Healthier Communities CHC #9963
• United Way Campaigns
Other
• Donatestuff.com
Schedule a donation pickup of your gently used goods and pick the LFA, GOC as your charity.
• Leave a Bequest
You can include the LFA, GOC in your will to support the mission beyond your lifetime.
• Give the Gift of Life Insurance
Name the LFA, GOC as a sole or partial beneficiary.
For more information on ways to give, please visit: lupusgreaterohio.org/get-involved/ donate or call our office at 1 (888) NO-LUPUS.
Could You Have Lupus?
Lupus is a chronic autoimmune disease that causes inflammation in various parts of the body. The disease can range from mild to life-threatening. Ninety percent of those diagnosed with lupus are females between ages 15 and 44, but lupus also occurs in men, older people, and children. Lupus can be very hard to diagnose because symptoms vary from person to person, can come and go, and can mimic symptoms of other illnesses. is important to know the symptoms of lupus and to know if you are at risk for this disease. Here is a simple test to help you. Read each question and answer it in terms of your current AND past health.
Brain and Nervous System
Have you had a seizure or convulsion?
Have you had unexplained confusion that lasted more than an hour?
Have you had unexplained fever higher than 100º F/38º C for more than a few days that was not due to infection?
Heart and Lungs
Have you felt chest pain while taking deep breaths?
Have you had a stroke or heart attack?
Kidneys
Have you been told you have protein in your urine?
Have you had swelling in your legs and ankles on both sides at the same time?
Blood and Circulatory System
Have you been told you have anemia, low white cell count, or low platelet count?
Have your fingers and/or toes become pale or red or blue, or felt numb or painful?
Have you had blood clotting problems or a miscarriage?
If you have had any symptoms like these, especially if you have had several, talk to your doctor about lupus. Early diagnosis and proper medical care are the best ways to manage lupus.
Please turn over this page for more information.
Eyes, Nose, and Mouth
Have you had sores in your mouth or nose that lasted more than five days?
Have you developed irritation or dryness in your eyes or mouth for more than a few weeks?
Stomach and Intestines
Have you had unexplained weight loss or abdominal pain or tenderness when your belly is touched?
Muscles and Joints
Have you had stiff, tender, and swollen joints that feel worse in the morning?
Have you had extreme fatigue and weakness for days or weeks at a time, even after plenty of sleep?
Skin
Has your skin broken out after being in the sun, but it’s not a sunburn?
Have you had redness or rash across your nose and cheeks in the shape of a butterfly?
Have you had sores on your skin that would not heal?
Have you had sudden, unexplained hair loss?
Let's Talk About It Webinar Series
Living with Lupus Magazine
Lupus Night Light Blog
My Lupus Living Room Podcast
Patient Navigator Program
Educational Summits & Classes
Support Groups
Local State Advocacy Use this QR code to access program & educational resources.
The Lupus Foundation of America is the only national force devoted to solving the mystery of lupus, one of the world’s cruelest and devastating diseases, while giving caring support to those who suffer from its brutal impact. Through a comprehensive program of research, education, and advocacy, we lead the fight to improve the quality of life for all people affected by lupus. Contact the LFA or a chapter that serves your area to find out how you can become involved in our mission and how we can help you.
Suzanne Tierney, CEO/President Suzanne@lupusgreaterohio.org
Kathy Holmes Finance Manager
Kathy@lupusgreaterohio.org
I was diagnosed with lupus in 1989 and joined the Lupus Foundation of America, Greater Cleveland Chapter the same year. I have been able to grow with the organization, as it became the LFA, GOC. Knowing how important it was to have somewhere to turn when I was first diagnosed is what motivates me to do all I can to help our chapter continue in our mission. Being in remission for the past 20 years has enabled me to take an active part in the growth of our chapter.
Mackenna Willis Creative Design Manager
Mackenna@lupusgreaterohio.org
I’m the marketing manager and creative developer when it comes to strategizing new ideas for Lupus awareness. As a graduate from Bowling Green State University with a BFA in graphic design, I’ve always envisioned utilizing my skills to make a difference. My enthusiasm to help others through design has always been a passion of mine and having the opportunity to share and grow with the LFA, GOC team has been nothing but inspiring.
I have spent the last 30 years dedicated to the lupus patients in Ohio. The goal is to provide a better quality of life until a cause or cure for lupus is found. My passion is providing programs to empower those affected by lupus so that they will have a better journey with lupus through education and emotional support. Lupus does not have to be a lonely, miserable, and misunderstood illness. My goal is to provide my chapter with the tools and resources to provide such services to all those in the state of Ohio.
Rita O. Piccin, BS, ND, RN Lead Patient Navigator /Outreach Coordinator
Rita@lupusgreaterohio.org
chapter continue to grow and help lupus patients for years to come.
I am a caring, collaborative, and resourceful nursing professional with over 30 years of experience in a variety of roles. I have a BS in Biology and French from John Carroll University and a Doctor of Nursing degree from Frances Payne Bolton School of Nursing at Case Western Reserve University. I am passionate about giving effective and empathetic customer service and education to patients, caregivers, families, colleagues and community organizations. I am honored to be a part of the LFA,GOC and dedicated to providing education, support, and resources to lupus warriors.
Community Outreach Coordinator
Aletha@lupusgreaterohio.org
two wonderful sons, they are the reason I fight lupus daily. I share my story everyday hoping that it might help or encourage someone else on their journey. I try to leave lupus patients with these thoughts and that is keep your environment positive in all aspects and do what you can
Chris Milazzo Event Assistant
Chris@lupusgreaterohio.org
Helping others has always been one of my greatest passions. After graduating from SUNY Oneonta with a degree in Media Studies, I knew I wanted to use my degree to do good. Being able to work for the LFA, GOC has been one of the most rewarding experiences in my career so far. It brings a smile on my face knowing that the work I do is able to help the lupus community of Ohio, and I hope to continue being a helping hand for the community.
www.lupusgreaterohio.org
THANK YOU FOR READING OHIO’S LUPUS MAGAZINE! FOR THE MOST UP-TO-DATE INFORMATION FROM THE WORLD OF LUPUS, PLEASE VISIT US AT WWW.LUPUSGREATEROHIO.ORG
THE FUNDING FOR THIS CAMPAIGN IS FROM AN EARMARK FROM THE STATE OF OHIO AND MANAGED BY THE OHIO DEPARTMENT OF HEALTH.
EMAIL INFO@LUPUSGREATEROHIO.ORG WITH ANY QUESTIONS OR CONCERNS.
GET IN TOUCH!
Lupus Foundation of America, Greater Ohio Chapter
12930 Chippewa Road, Brecksville, OH, 44141
Phone: (440) 717-0183 Toll-free: 1 (888) NO-LUPUS
@lupusgreaterOH
