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10TH ANNUAL

ASBESTOS AWARENESS CONFERENCE

“Where Knowledge and Action Unite” Washington, D.C.

April 4- 6, 2014

Conference Event Schedule FRIDAY, April 4

Washington, DC Tour

Private Speakers, Honorees, and Sponsors Dinner (By Invitation Only) 6:30 PM – 8:30 PM

SATURDAY, April 5

Keynote Address and Conference 8:00 AM – 5:00 PM

SATURDAY, April 5 ADAO Awards & Recognition Dinner 6:30 PM – 9:00 PM

SUNDAY, April 6 Unity and Remembrance Brunch 9:30 AM – 11:30 AM


April 5, 2014 Dear Registrants, Speakers, Honorees, Sponsors, Volunteers, and Guests: On behalf of the Asbestos Disease Awareness Organization (ADAO), I welcome you to Washington, D.C. for our 10th Annual International Asbestos Awareness Conference. This year’s tenth anniversary theme is: “Where Knowledge and Action Unite.” By participating in the 2014 conference and selflessly giving your time, expertise, and support, you are changing the lives of countless victims of this crisis. We are thrilled to welcome Rear Admiral Boris D. Lushniak, MD, MPH, Acting U.S. Surgeon General, as our Keynote Speaker this year. What an honor to have him speak to us on our tenth anniversary! For the past decade, we have worked together to strengthen our education, community, and advocacy initiatives, forming a growing base of global support. This is an exciting time for ADAO, as ten different nations have come together for this year’s conference. Looking back at how much has changed since we launched in 2004, I am inspired and encouraged by the advances we have made together in asbestos disease awareness. This conference would not be possible without the work of so many wonderful people, and I offer my gratitude to the volunteers, speakers, and honorees here this weekend. I thank our esteemed Science Advisory Board for their unfailing commitment, sharing their knowledge and reviewing the accuracy of our work for many years. We are thankful to again welcome our National Spokesperson and Celebrity Board Co-Chair Jordan Zevon who shares his leadership, compassion, and splendid musical talents. I am also grateful to Celebrity Board Co-Chair Barbara Minty McQueen for courageously speaking out for herself and to ensure that Steve’s voice continues to be heard. Our tenth anniversary is a time to celebrate what we have accomplished, but also a sad reminder of the dear friends and family we have lost and the fact that asbestos is still legal and lethal in the U.S. Since ADAO was founded, the U.S. has consumed more than 20,000 tons of asbestos, and imports continue today. In these ten years, more than 100,000 Americans have died from asbestos exposure. We strongly encourage Congress and leaders worldwide to promptly enacting a complete ban on asbestos. That is the only way we can hope to eliminate this inexcusable epidemic. The U.S. Senate unanimously passed the 10th Resolution designating April 1-7 as National Asbestos Awareness Week. The week offers a beacon of hope to thousands of victims of asbestos diseases, in the U.S., and in conjunction with Global Asbestos Awareness Week, to participants around the world. Thank you for joining us today. We are a family and this conference is a strong reaffirmation that together, we can create real change. In unity,

Asbestos Disease Awareness Organization is a registered 501(c)(3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · (310) 251-7477 www.AsbestosDiseaseAwareness.org


ADAO 2014 Annual International Asbestos Awareness Conference Agenda “Where Knowledge and Action Unite”

10th Annual ADAO International Asbestos Awareness Conference Agenda FRIDAY, April 4, 2014 11:30 AM – 3:00 PM 6:00 – 8:30 PM

Private Family Washington, D.C. Tour (Invitation Only) Private Speaker, Honoree, and Sponsor Dinner (Invitation Only)

SATURDAY, April 5, 2014: Conference Presentations 8:00 – 8:30 AM Registration and Continental Breakfast Welcome and Opening Remarks: Linda Reinstein, ADAO President/CEO and Co8:30 – 8:40 AM Founder 8:40 – 8:50 AM Dr. Richard Lemen and Dr. Arthur Frank 8:50 – 9:00 AM Michael Bradley, Mesothelioma Patient, "Asbestos Ruined My Life" Medical Advancements: Diagnosing and Treating Mesothelioma and Other Session I Asbestos-Related Diseases (Chairperson: Christine Oliver, M.D.) 9:00 – 9:10 AM Linda Reinstein, "Where Knowledge and Action Unite" 9:10 – 9:15 AM Lisa Rahe Thompson, "Honoring, Remembering and Giving" 9:15 – 9:20 AM Lou Williams, "I Will Not Die in Vain" 9:20 – 9:30 AM Dr. Richard Lemen, "ADAO: A Decade of Progress" 9:30 – 9:40 AM Dr. Arthur Frank, "Global Update from the Front Lines" Dr. Christopher Weis & Dr. Aubrey Miller, "Protecting Public Health with Prevention" 9:40 – 9:55 AM 9:55 – 10:10 AM Dr. David Egilman, "Asbestos: The History of Corporate Corruption" Dr. Joachim Rosler, "Germany: New Trends in Surveillance and Treatment" 10:10 – 10:25 AM 10:25 – 10:40 AM Dr. Ken Takahashi, "Asian Asbestos Initiative for the Elimination of Asbestos-Related Diseases" 10:40 – 10:55 AM Dr. Steven Markowitz, "Early Detection of Asbestos-Related Lung Cancer: CT Screening" 10:55 – 11:05 AM Q&A Keynote Speaker: Rear Admiral Boris Lushniak, Acting U.S. Surgeon General 11:05 – 11:35 AM 11:35 AM – 12:35 PM Lunch Patients and Caregivers: Navigating the Medical Maze (Chairperson: Paul Session II Zygielbaum) 12:35 – 12:45 PM Ann Samuelson, "From Grief to Empowerment" 12:45 – 1:00 PM Dr. Christine Oliver, "Exposed to Asbestos: What's Next?" 1:00 – 1:15 PM Barbara Catlin, "Coping with Grief on the Road to Healing" 1:15 – 1:25 PM Q&A Prevention: What Is It? Where Is It? What Do I Do? (Chairperson: Brad Black, Session III M.D.) Ellen Patton, "Mesothelioma Patients Speak Up and Out" 1:25 – 1:35 PM 1:35 – 1:50 PM Dr. Celeste Monforton, "Asbestos: When Regulations Fail to Protect" 1:50 – 2:05 PM Heather White, "The Toxic Dump and TSCA Reform" 2:05 – 2:20 PM Dr. James Webber, "Asbestos Fibers: What You Can't See Can Kill" 2:20 – 2:35 PM Dr. Jim Melius, "Current Aspects of Asbestos Exposure and Prevention" 2:35 – 2:50 PM Sinem Kankotan, Turkish Delegate 2:50 – 3:05 PM Syed Mezab Ahmed, Pakistani Delegate Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · (310) 251-7477 www.AsbestosDiseaseAwareness.org


ADAO 2014 Annual International Asbestos Awareness Conference Agenda 3:05 – 3:15 PM Session IV 3:15 – 3:25 PM 3:25 – 3:40 PM 3:40 – 3:55 PM 3:55 – 4:10 PM 4:10 – 4:25 PM 4:25 – 4:40 PM 4:40 – 4:55 PM

“Where Knowledge and Action Unite”

Panel Q & A Advocacy: Global Ban Asbestos Action (Chairperson: Celeste Monforton, DrPH, MPH) Marilyn Amento, "A Decade of Asbestos Advocacy" Bill Ravanesi, "Breath Taken: The Landscape and Biography of Asbestos" Barry Robson, "Australia: from Wittenoom to the Rotterdam Convention" Dr. Barry Castleman, "Campaign to Get Yale to Rescind Honorary Degree to Convicted Asbestos Billionaire" Fernanda Giannasi, "Brazil: Protecting Workers and Families" Association Nationale de Défense des Victimes de l'Amiante (ANDEVA) Delegate, "France: Bringing the World Together" Yvonne Waterman, The Netherlands, "EU Ban Asbestos History and Policy" Q&A

SATURDAY, APRIL 5, 2014: Awards and Recognition Dinner, 6:30 – 9:30 PM Performance by Jordan Zevon, ADAO National Spokesperson 2014 ADAO Honorees Congressman Henry Waxman, Tribute of Hope Honoree Dr. David Egilman, Dr. Irving Selikoff Lifetime Achievement Honoree Dr. Ken Takahashi, Dr. Irving Selikoff Lifetime Achievement Honoree Bill Ravanesi, Tribute of Inspiration Honoree Association Nationale de Défense des Victimes de l'Amiante (ANDEVA), Tribute of Unity Honoree Congressman Bruce Vento, Warren Zevon "Keep Me in Your Heart" Honoree presented to Susan Vento Janelle Cameron Bedel, Alan Reinstein Honoree, posthumously Heather Von St. James, Alan Reinstein Honoree Lou Williams, Alan Reinstein Honoree 2014 ADAO Special Recognition Awards Michael Bradley, The Valor Award ADAO Science Advisory Board ADAO Leadership and Volunteers 2014 Sponsorship Recognition Awards Emily Bankhead, 2014 Diamond Donor Platinum Sponsors Motley Rice LLC accepted by Anne Kearse The Simmons Law Firm accepted by Perry Browder Simon Greenstone Panatier Bartlett, P.C. accepted by Jessica Dean Silver Sponsor Early, Lucarelli, Sweeney and Meisenkothen accepted by Annette Charlevois 9:30 PM Conclusion

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · (310) 251-7477 www.AsbestosDiseaseAwareness.org


ADAO 2014 Annual International Asbestos Awareness Conference Agenda “Where Knowledge and Action Unite”

SUNDAY, APRIL 6, 2014: Unity and Remembrance Brunch, 9:30 – 11:30 AM 9:30 AM Brunch Begins Welcome and Opening Remarks: Dr. Richard Lemen Susan Vento, Keynote Speaker, "Because We Must: A Call to Collective Action" Heather Von St. James, "The Power in Our Voices" Performance by Jill Cagle, "Blessings" (written by Laura Story) Candle Lighting led by Ellen Tunkelrott 11:30 AM Conclusion

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · (310) 251-7477 www.AsbestosDiseaseAwareness.org


2014 ADAO Conference Biographies: Honorees, Speakers and ADAO Leadership

asbestos.

Syed Mezab Ahmed Syed Mezab Ahmed is a 25 year old Pakistani who has been involved with ADAO and the global fight to ban asbestos in various capacities since the asbestos exposure related death of his uncle in 2007. He has filed a petition in the Honorable Environmental Tribunal to ban and hold Dadex Eternit Ltd. responsible for exposing millions of Pakistani workers and residents to asbestos. Their case is now pending in the Supreme Court of Pakistan. In February, the Ahmed family will host the first Conference Ban Asbestos Pakistan to raise greater support and awareness in the fight against

Marilyn Amento has been involved with ADAO in various capacities since before the first Asbestos Awareness Conference in Washington, DC in 2005. Marilyn is the widow of Joe Amento, Jr. who died of mesothelioma at the age of 53, only 6 months after his first symptom. Joe was exposed to asbestos approximately 40 years prior while visiting his father at one of the several asbestos plants, and playing on asbestos scrap piles in the small borough of Ambler, a Philadelphia suburb. Marilyn has a Master’s Degree in Human Services Management from The Heller School of Brandeis University, and is the proud Mom of two college students, Joe and Julie. She channels her grief and anger with the asbestos industry by working with ADAO and educating the public about asbestos through her strong Facebook presence. Brad Black, PhD has been the Medical Director and CEO for the Center for Asbestos and Related Disease in Libby, Montana since 2000. He has been a physician in the Libby medical community since 1977 and became the Lincoln County Health Officer in 1984. Beginning in 1999, he worked closely with Dr. Alan Whitehouse, a Spokane, WA pulmonologist, for 9 years. Since 2000, Dr. Black has had the opportunity to care for thousands of patients and this longitudinal observation of progressive pleural fibrosis has led to a clear characterization of Libby amphibole asbestos disease. CARD continues to provide asbestos health screening and care to a population with significant Libby Amphibole exposure and related diseases. In 2008 he presented at the National Institute of Health/National Cancer Institute about the progressive pleural fibrosis and mesothelioma identified in those exposed to Libby amphibole asbestos. He was instrumental in initiating research on Libby amphibole asbestos health effects. His work has expanded into research leading to an association with pulmonologists and occupational medicine specialists from multiple academic centers around the U.S. In 2010, Dr. Black became an adjunct professor at Mount Sinai School of Medicine in New York City. He has collaborated on a number of professional journal publications, and most recently he participated in a National Institute of Environmental Health Sciences working group that developed a publication on the non- neoplastic, pleural endpoints. Today, Dr. Black continues his dedicated efforts to providing excellent healthcare, outreach, and research for asbestos related diseases.

Asbestos Disease Awareness Organization is a registered 501(c)(3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.251.7477 www.AsbestosDiseaseAwareness.org


2014 ADAO Conference Biographies: Honorees, Speakers and ADAO Leadership Michael Bradley is a 29 year old student at North Metro Technical College in Georgia. He is an inspirational and courageous Mesothelioma warrior and anti- asbestos advocate. When Michael was first diagnosed over 2 years ago he was only given three months to live, but instead of succumbing to the disease he has used his story to support others in the asbestos community and draw attention to the inhumanity in the use of asbestos, fighting for a global ban. His story while incredibly sad and moving is an inspiration, a testament to the resilience and strength of the human spirit. Jill Cagle is the surviving spouse of Meso Warrior Robbie Cagle, who lost his 6 year battle with Peritoneal Mesothelioma on 9-11-11 at the age of 46. She is a mother and now grandmother of 3. She is a Christian and her faith in God truly sustains her. She is the lead singer in the Band Backstreet and plays the Fiddle. She makes primitive crafts and candles and she loves to ride her Harley and feel the wind in her hair. She has been associated with ADAO since 2007 and has now started an annual Motorcycle Ride, "Ridin the Wind With Rob" which includes a 110 mile ride, dinner, silent auction, raffles and t-shirt sales to raise funds for awareness and ultimately a CURE of Mesothelioma. Jill and Rob marched on Capitol Hill in 2010 to help get Illinois to sign the National Asbestos Awareness Day Bill and also met with the DOD. She is committed to doing whatever it takes to get this killer 100 % banned. She is truly honored and proud to be a part of this organization. Barry Castleman, ScD is an Environmental Consultant trained in chemical and environmental engineering. He holds a Doctor of Science degree from the Johns Hopkins School of Public Health. He has been a consultant to numerous agencies of the US government and other governments, international bodies, and environmental groups dealing with a wide range of public health issues. He has testified as an expert in civil litigation in the US on the history of asbestos as a public health problem and the reasons for failure to properly control asbestos hazards. Dr. Castleman has spent the past 40 years working on asbestos as a public health problem. Barbara Catlin, M.Ac, is Founder and Executive Director of Bigger Conversations, a nonprofit organization dedicated to the promotion of healing dialogue and mindful service in communities. She developed and leads Caregiver Wellness Circles®, a 6-week program designed for family and professional caregivers. The program emphasizes caregiver wellness and the creation of individual self-care plans. Ms. Catlin is a licensed acupuncturist and healing arts practitioner and serves as a hospice volunteer, tending patients and their families for the past 20 years. She teaches community and professional classes on death and dying, conscious living, redefining aging, and mindfulness meditation. Ms. Catlin is a member of the Howard County Commission on Aging in Maryland.

Asbestos Disease Awareness Organization is a registered 501(c)(3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.251.7477 www.AsbestosDiseaseAwareness.org


2014 ADAO Conference Biographies: Honorees, Speakers and ADAO Leadership Kim Cecchini has been a volunteer with ADAO since its inception in 2004, having lost her beloved stepfather, William Shields, to mesothelioma. As a passionate communications professional, she lends her expertise to help ADAO in its efforts to publicize important information about asbestos disease prevention and ban advocacy efforts. She currently serves as Visionary Integration Professionals' (VIP’s) Vice President of Marketing. Prior to that, she spent more than two decades providing strategic communications to high-growth companies, and has helped to generate five successful acquisitions by Fortune 500 companies. Her vast industry experience encompasses federal contracting, emerging technology, healthcare, policy communications, and a variety of commercial and trade association verticals. Kim is a recognized industry writer, speaker, and thoughtful leader. Ellen Costa started as a volunteer with ADAO in 2012 and is honored to be of service to this very special organization; its mission, founders and supporters. Professionally, she has been in the financial services industry for over 25 years and served firms in marketing, communications, product management and strategic business development. Her current role at Wells Fargo Home Mortgage is as a strategic consultant in the financial reform regulatory environment. The awareness, family support and leadership ADAO provides in creating the change needed in this world is truly powerful. Her interests and passions reside in venues associated with creating an environmentally safe and sustainable environments for our families and future generations. Suzanne Dupree has been a volunteer for over 40 years, and that role has always been one of the most rewarding of her life. Her present employment at the District Attorney's office allows her to work for justice for victims daily. Prior to her current job, she worked 15 years as a curriculum specialist for school districts, and earlier, for the President of the Associated Press in New York. Several years ago, on vacation, she met Linda Reinstein, who had just founded the Asbestos Disease Awareness Organization. She was so impressed with her commitment that she volunteered for the next conference. She has worked for ADAO as a volunteer for six years now, and for the last three years, she has served as the conference coordinator. The returns are exponential for whatever time she gives; she has an opportunity to utilize her skills in the most rewarding way possible. She donates her time for an organization that formulates political policy and advocates for practical issues on a global level. Her volunteering allows her to keep up daily, through social media, with mesothelioma victims that have become her friends. She uses the educational resources provided by ADAO to create awareness of the impact of asbestos to those outside of our ADAO family. Most importantly, she believes in Linda Reinstein. She believes that, in unity, we can make change. She is privileged to serve the mission of ADAO.

Asbestos Disease Awareness Organization is a registered 501(c)(3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.251.7477 www.AsbestosDiseaseAwareness.org


2014 ADAO Conference Biographies: Honorees, Speakers and ADAO Leadership David Egilman, MD is clinical associate professor in the Department of Family Medicine at Brown University. Dr. Egilman is Clinical Associate Professor in the Department of Family Medicine at Brown University. He has founded and successfully funded two nonprofit organizations including the Global Health Education Training and Service (GHETS.org). GHETS is the development office for a WHO affiliated network of community oriented (non-hospital) focused medical nursing & allied health professions schools. GHETS supports and enhances local infrastructure in developing countries, focusing on education institutions to increase the number of trained medical professionals in the workforce in an effort to make large sustainable impacts on the communities they work in. David is also the Editor of the International Journal of Occupational and Environmental Health (IJOEH.com). He has served as a litigation consultant in butter flavorings cases at the request of injured consumers and workers. Arthur L. Frank, PhD, MD is co-chair of ADAO's Science Advisory Board and serves as Professor of Public Health and Chair of the Department of Environmental and Occupational Medicine at the Drexel University School of Public Health in Philadelphia. Trained in both occupational medicine and internal medicine, Dr. Frank has been interested in the health hazards of asbestos for more than 35 years. He has published a great deal of work on the hazards of asbestos, and clinically cared for asbestos effected patients. He has lectured internationally about the problems of asbestos, and worked in many settings looking at the diseases caused by this material. Fernanda Giannasi, Fernanda Giannasi is a Civil and Safety Engineer and ex-Labor Inspector for the Ministry of Labor and Employment for 30 years, currently retired. She is coordinator of the Virtual Citizens Ban Asbestos Network for Latin America, founder of the Brazilian Association of People Exposed to Asbestos (ABREA) and Fellow of the Collegium Ramazzini. She serves as an expert witness in judicial cases related to asbestos and other toxic chemicals. She also leaded thousands of workers who have filed lawsuits against the asbestos industry. In charge of a Federal Labor Inspector, she staunchly defended the public interest on workers’ safety and health and was pressured by the asbestos lobby and endured all kind the, pressures, harassments including death threats, offensive campaigns and criminal charges by her detractors. Despite of these threatens, she has been awarded in Brazil and internationally in Canada (Ray Sentes Award), USA by the APHA-American Public Health Association and ISEE-International Society for Environmental Epidemiology, Japan by the Tajiri Muneaki Memorial Fund. She is internationally well known and highly respected for her proficient and perseverant campaigning to save lives from asbestos. Fernanda Giannasi is the personification of the fight against asbestos in Brazil. Not for nothing is she called ‘The Brockovich of Brazil’. See e.g. http://www.publicintegrity.org/2010/07/21/3418/brockovich-brazil.

Asbestos Disease Awareness Organization is a registered 501(c)(3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.251.7477 www.AsbestosDiseaseAwareness.org


2014 ADAO Conference Biographies: Honorees, Speakers and ADAO Leadership

care providers.

Freddi Segal-Gidan, PA, PhD is the director of the Rancho los Amigos/USC California Alzheimer’s Disease Center. She is a physician assistant with over three decades of extensive clinical experiences, most of which has been spent caring for older adults with chronic illnesses. She received her doctorate in gerontology as part of the first class of doctorate trained gerontologists in the country from the USC Leonard Davis School of Gerontology. Dr. Segal-Gidan holds appointments as assistant clinical professor in the department of neurology at the USC Keck School of Medicine and at the USC School of Gerontology. She is actively engaged in clinical care, research and training of health professionals, and a strong advocate for geriatric training of all health

Herman Hamilton is the Executive Assistant with ADAO. After becoming familiar with the medical and legal aspects of Asbestos through his neighbor and longtime friend of 30 years, Dr. Barry Castleman, Herman joined ADAO in January of 2005 as the Veterans Representative. Presently, Herman assists Linda in the day-to-day operations of ADAO and amongst his many duties, he has been a liaison for other like-minded asbestos groups. He also works with Congressional staffers to set up meetings regarding ongoing legislation. His proudest accomplishment has been his work to defeat the Asbestos Trust Fund. The goal he would like to achieve the most is the passage of legislation for a total ban of Asbestos. Outside of ADAO, Herman has served on the Board of Directors of Legal Aid Bureau of Maryland for the past 13 years and counting. Michael R. Harbut, MD, MPH, FCCP is Chief of the Center for Occupational and Environmental Medicine: Clinical Assistant Professor, Wayne State University, School of Medicine, Detroit, Michigan. An internationally known expert in the diagnosis and treatment of environmental and workplace diseases, Dr. Harbut has been named co-Director of the National Center for Vermiculite and Asbestos Related Cancers. He is the coauthor of the American Thoracic Society’s 2004 Recommendations for the Diagnosis and Treatment of Non-Malignant Disease Caused by Asbestos Exposure. Dr. Harbut is a past chair of the occupational and environmental health section of the American College of Chest Physicians, and has served on the Board of Directors of the Mesothelioma Applied Research Foundation. Dr. Harbut brings his expertise to address the need for early diagnosis and aggressive treatment of asbestos related diseases. Marc Hindry is professor and researcher in mathematics at the University Diderot Paris 7. He became involved with asbestos because the University buildings where he worked were sprayed with asbestos and due to this exposure, several employees suffered from asbestos disease. He is among the founders of Andeva, the French National Association for the Defense of Asbestos Victims, and has since continuously advised the company. Today, he is also in charge of international matters for Andeva and was the Asbestos Disease Awareness Organization is a registered 501(c)(3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.251.7477 www.AsbestosDiseaseAwareness.org


2014 ADAO Conference Biographies: Honorees, Speakers and ADAO Leadership main organizer of the "International day for Asbestos Victims", held in Paris, October 2012 Sinem Kankotan was born in the town of Tunceli, Turkey where she lived until moving to İstanbul in 1993. She will graduate from Dokuz Eylül University in June 2014 with a Bachelor’s Degree in Labor Economics and Industrial Relations. She first met Linda Reinstein at the 19th Annual World Congress in Istanbul in 2011. Since then she has been mentoring under Linda and has introduced the science behind asbestos awareness to her University and government via PowerPoint presentations. The ADAO's 10th Annual Conference will be her second conference that she is attending as a speaker. She is a loyal and dedicated ADAO volunteer focusing all her hard work on the goal of reaching a global asbestos ban. Doug Larkin is the Co-Founder of Asbestos Disease Awareness Organization (ADAO) – which works to help raise awareness about asbestos related diseases, while serving as a global community for asbestos victims and their families. Doug holds a B.A. in political science from Muskingum University, New Concord, Ohio. Doug is the Director of Communications for the Paralyzed Veterans of America (PVA), a congressionally chartered veteran service organization committed to helping all veterans secure rehabilitation, benefits, accessibility and a career. Previously, Doug was the President & CEO of Larkin Communications, a strategic communications and public affairs firm based in Washington, DC. He has worked on numerous successful legislative campaigns on behalf of large technology companies and national trade associations. In addition, he is considered an expert in corporate communications, brand identity, as well as message development and dissemination. Doug has also worked as the press secretary and the communication director for Congressman Kevin Brady (R-08TX). Rep. Brady is the Republican Deputy Whip and a senior member of the House Ways & Means Committee. “Congress and the media respond to compelling stories. It’s through your stories and donations to ADAO, that enables us to advocate a strong message for present and future victims of asbestos related disease.” Doug has worked tirelessly behind the scenes garnering the attention of the media and advocating for the rights of asbestos victims and their families. Doug dedicates his service to William D. Shields, a family member who was exposed to asbestos, and died from Mesothelioma. Richard Lemen, PhD is a former Assistant Surgeon General of the United States and also served as the Acting Director and the Deputy Director of the National Institute for Occupational Safety and Health before his retirement. He has been a practicing epidemiologist for more than forty years, and has taught graduate level courses on environmental and occupational health issues, including asbestos, at the Rollins School of Public Health at Emory University. He has also testified on behalf of asbestos victims; Dr. Lemen is a world-renowned author, speaker, and lecturer on this topic.

Asbestos Disease Awareness Organization is a registered 501(c)(3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.251.7477 www.AsbestosDiseaseAwareness.org


2014 ADAO Conference Biographies: Honorees, Speakers and ADAO Leadership Rear Admiral Boris D. Lushniak, MD, MPH, is currently the acting United States Surgeon General. Dr. Lushniak communicates the most pertinent personal and public health related scientific information to the general public while also overseeing the U.S. Public Health Service (USPHS) Commissioned Corps comprising approximately 6,700 uniformed health officers who serve in locations around the world to promote, protect, and advance the health and safety of our Nation. Dr. Lushniak served as Deputy Surgeon General from November 2010, until July 17, 2013, when he assumed the duties of Acting Surgeon General. Dr. Lushniak and the U.S. Surgeon General’s Office has worked closely with the ADAO for years and the office has made a huge impact in the fight to ban asbestos having released two official warnings about the dangers of asbestos since 2009. The ADAO is honored Dr. Lushniak will deliver the ADAO conference keynote address. Steven Markowitz, MD, DrPH, an occupational medicine physician, directs the Commoner Center for Health and the Environment (CCHE) at Queens College, City University of New York. He is Adjunct Professor of Preventive Medicine at Mount Sinai School of Medicine. He received his B.A. from Yale University and his M.D. and DrPH in epidemiology from Columbia University. With the United Steelworkers, Dr. Markowitz directs the Worker Health Protection Program, a national medical screening program for Department of Energy nuclear weapons workers that has used low dose CT scanning to screen over 11,000 workers for early lung cancer detection since 2000. Dr. Markowitz and CCHE currently partner with Make the Road New York to address occupational hazards that Latino day laborers face when performing Hurricane Sandy clean-up work. Dr. Markowitz is Editor-in-Chief of the American Journal of Industrial Medicine and the Associate Editor of a major textbook, Environmental and Occupational Medicine. Jim Melius, MD is an occupational physician and epidemiologist who previously worked for the National Institute for Occupational Safety and Health and then the New York State Department of Health. For the past sixteen years, he has worked for the Laborers’ International Union of North America and currently is Administrator of the New York State Laborers’ Health and Safety Trust Fund, NYS LECET (their labor-management cooperation fund), and the NYS Laborers Political Action Committee. He is also currently serves as the Chair of the Presidential Advisory Board on Radiation and Worker Health and the Chair of the Steering Committee for the WTC Medical Monitoring and Steering Committee which oversees the medical program for WTC responders.

Asbestos Disease Awareness Organization is a registered 501(c)(3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.251.7477 www.AsbestosDiseaseAwareness.org


2014 ADAO Conference Biographies: Honorees, Speakers and ADAO Leadership Captain Aubrey K. Miller, M.D., M.P.H., currently Senior Medical Advisor, Office of the Director, National Institute of Environmental Health Sciences (NIEHS), National Institutes of Health.(NIH). He has responsibility for strategic planning and coordination of environmental health issues and activities among HHS and other federal agencies, as well as supervisory oversight of the NIEHS office in Bethesda, MD. Dr. Miller has longstanding experience, publications, speaking engagements, and contributions to a wide range of occupational and environmental health issues and policies. He has had extensive involvement in the Gulf Oil Spill response providing testimonies before Congress on the health concerns of environmental exposures and coordinating a variety of ongoing NIEHS activities. His has worked on health issues for numerous disaster responses including Hurricane Sandy, H1N1 pandemic, anthrax attacks, Hurricane Katrina, and WTC response. Additionally, Dr. Miller has longstanding involvement with asbestos issues; helping to lead the federal response to the asbestos contamination in Libby, Montana; assessing health effects & exposures, developing public health alerts, and facilitating improved access to health care and needed research. He is also working on newly identified concerns related to hydraulic fracturing and erionite exposures in the U.S. He is board certified in Occupational and Environmental Medicine. Barbara Minty McQueen is the widow of American film star Steve McQueen, and is a former model and photographer. She is also the author of Steve McQueen: The Last Mile, which documents the three-and-a-half year relationship between the two and includes candid photographs from 1977 to 1980. McQueen has hosted several art exhibits of her work with shows in London, Tokyo, San Francisco, Nashville, Phoenix and Idaho, where she resides.

Celeste Monforton, DrPH, MPH is a professorial lecturer in the Department of Environmental and Occupational Health at the George Washington University's School of Public Health and Health Services. Her research includes assessment of worker health and safety laws and policies, and their effectiveness in protecting workers from illnesses, disability and death. She has published articles on strategies used by economic interests to manipulate scientific evidence to create uncertainty about health risks in order to delay protective regulatory action. Prior to her academic appointment, Dr. Monforton was a federal employee at the U.S. Department of Labor’s Occupational Safety and Health Administration (OSHA, 1991-1995) and Mine Safety and Health Administration (MSHA, 1996-2001). Dr. Monforton served on the special panels appointed by the West Virginia Governor to investigate the January 2006 Sago coal mine disaster that took the lives of 12 workers, and the April 2010 disaster at Massey Energy's Upper Big Branch mine that killed 29 workers. Dr. Monforton is an active member of the American Public Health Association, and she has served in a leadership position with the organization’s Occupational Health and Safety Section. Asbestos Disease Awareness Organization is a registered 501(c)(3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.251.7477 www.AsbestosDiseaseAwareness.org


2014 ADAO Conference Biographies: Honorees, Speakers and ADAO Leadership Christine Oliver, MD, MPH, MS, FACPM is President of Occupational Health Initiatives, Inc. She is an Associate Professor of Clinical Medicine at Harvard Medical School and an Associate Physician in the Department of Medicine (Pulmonary and Critical Care Unit) at the Massachusetts General Hospital in Boston. Board certified in internal medicine and in preventive (occupational) medicine, Dr. Oliver’s primary specialty is Occupational and Environmental Medicine, with an emphasis on occupational lung disease. She is the Co-Director of Occupational and Environmental Medicine at the Massachusetts General Hospital. There she evaluates and cares for patients with a variety of occupational and environmental diseases, including occupational asthma, interstitial lung disease associated with exposure to asbestos and beryllium, and building-associated illness. Dr. Oliver has done research and published in the area of occupational lung disease. An important focus of her research and clinical activities has been asbestos-related disease. She has lectured frequently on this topic. Dr. Oliver is responsible for medical surveillance of a group of public school custodians employed by the City of Boston and exposed to asbestos during the course of that work. She consults on medical-legal issues and provides expert witness testimony. Dr. Oliver has testified before Congress on issues related to workplace exposures and related disease. She was an active participant in the implementation of medical aspects of the 1991 Workers’ Compensation Reform Act signed into law in Massachusetts. Ellen Volk Patton is a mesothelioma patient dedicated to raising asbestos awareness, advocacy and support. In 2001, at 41 years old, she was diagnosed with bilateral malignant pleural mesothelioma. She has bravely fought with an alternative treatment option, immune therapy. Ellen is a very positive person and her strengths shine through with her desire to share her story and educate others on asbestos exposure.

Pierre Pluta worked for 25 years in shipyards as mechanic. He has been diagnosed with pleural plaques and asbestosis. He retired at the age of 54, benefitting from the French early retirement plan for workers suffering from asbestos-related diseases. He is the founder of the local association Andeva, regional association fighting for the defense of asbestos victims in the North of France. He helped to organize the "walks of the widows of Dunkerque" - silent demonstrations by courageous women who lost their husbands to asbestos diseases and asked for justice. Today Pierre is president of Andeva, the National Association for Asbestos Victims. Bill Ravanesi, MPH is the Founder and President of the Center for Visual Arts in the Public Interest, in Boston, MA. With over 30 years of experience in the non-profit sector covering healthcare, public health and environmental programmatic initiatives, including 20 years on asbestos advocacy. He produced the acclaimed documentary traveling exhibition, Breath Taken: The Asbestos Disease Awareness Organization is a registered 501(c)(3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.251.7477 www.AsbestosDiseaseAwareness.org


2014 ADAO Conference Biographies: Honorees, Speakers and ADAO Leadership Landscape & Biography of Asbestos. His photojournalism work concentrated on farm labor, inner city life, environmental and public health issues. The photographs have been reproduced in many publications and exhibited in numerous university galleries and museums in the United States and abroad. Currently he is the Boston Regional Director for a global non-profit, Health Care Without Harm. Linda Reinstein is the President/CEO and Co-Founder of Asbestos Disease Awareness Organization (ADAO). Reinstein became an activist when her husband, Alan, was diagnosed with mesothelioma in 2003. She cofounded the Asbestos Disease Awareness Organization in 2004, and now serves as President and CEO. Reinstein has been a strong political voice for justice in every major asbestos-related issue. Reinstein, a highly sought-after international speaker, has frequently served as a Congressional witness and presented at the Department of Labor (OSHA), British House of Commons, United Nations Congress, American Public Health Association, and to other audiences around the world. Recognized as an expert with more than 35 years of nonprofit experience in building and sustaining grassroots organizations, Reinstein specializes in developing, implementing, and leveraging integrated social media campaigns. Recently, Reinstein was asked to create social media educational materials and facilitate a workshop in Asia. Focused on national and international occupational and environmental disease prevention, Reinstein’s proficiency in the powerful advocacy space of online media has greatly increased the effectiveness of ADAO’s core mission of education, advocacy, and community support actions. She has won many prestigious awards including the Global Impact Award (2013), from the Independent Asbestos Training Providers; Bruce Vento Hope Builder Award (2011), from the Mesothelioma Applied Research Foundation; the highest level of the Presidential Volunteer Service Award for her 4,000 hours of volunteerism during her lifetime (2010); and the Heart and Soul Award in from the Manhattan Beach Women in Business Association (2005). Laurie Rice, was born and raised in Los Angeles where she received her B.A. in Art History from UCLA and a M.A. in special education from CSUN. She taught deaf and hard of hearing students for five years before attending Loyola Law School. A former Deputy District Attorney, Laurie has dedicated the last 22 years to various teaching positions, volunteering in the community and pro bono legal work.

Barry Robson, the President of ADFA, became a Union delegate of the Waterside Workers Federation in 1970 and was elected as Senior Vice President of that Union in 1988. In 1995 he was elected Assistant Branch Secretary of the Maritime Union of Australia, a position he held until retirement from the workforce in 2003. From 1991 to 1995 he was a Councillor on Blacktown City Council. He became a delegate to ADFA in 1996 and was appointed President in 2002 and elected President in 2003, a position he holds today. He has been appointed to the following, Asbestos Asbestos Disease Awareness Organization is a registered 501(c)(3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.251.7477 www.AsbestosDiseaseAwareness.org


2014 ADAO Conference Biographies: Honorees, Speakers and ADAO Leadership Research Institute in 2004, Federal Government Asbestos in Telstra Infrastructure in 2013 and Federal Asbestos Safely and Eradication Agency (ASEA) in 2013. Barry has been awarded three Life Memberships, Maritime Union of Australia, St Marys Baseball Club and Blacktown Mt Druitt Cardiac Support Group. Joachim A. Roesler, MD, MPD, is the Head Occupational Physician at the University of Cologne, Germany and Professor of Medicine at the BonnRhine-Sieg University of Applied Sciences with special focus on diagnosis and evaluation occupational diseases. His research activities focus on prevention of work-related diseases considering the impacts of work and the environment on health. Dr. Roesler is an expert evaluator of occupational diseases in the German social security system, the majority of them caused by asbestos, benzene, radiation and aromatic amines from dyes. Dr. Roesler is a member of the German Society of Occupational and Environmental Medicine (DGAUM) and the Society of German Company and Industrial Physicians (VDBW). Ann Samuelson is from Seaside, OR. Her father Stan Grimberg lost his battle with mesothelioma 32 years ago, ADAO has given Ann an opportunity to volunteer, work with others, and make a difference. She has served as a County Commissioner, is a Director on NW Regional Education Service District Board, and is a licensed Real Estate Broker in the state of Oregon. She holds steadfast in the hope that elected officials will listen and stop this man-made disaster. Ann advocates to ban asbestos in the USA and worldwide, compensation for victims, and is proud to be a part of the global growth ADAO has developed through social media, advocacy, and our partners around the world. This is Ann's second year as a presenter at the ADAO conference. Cortney Segmen has been an ADAO intern since May 2013. She is currently a senior at the University of Michigan majoring in Biopsychology, Cognition and Neuroscience and minoring in Writing. Upon losing her father to mesothelioma in 2007 and learning that asbestos use has not yet been banned, she’s taken the opportunity to raise awareness with ADAO via social media, produce educational videos, and write academic papers on the dangers of asbestos exposure. She hopes to attend a Master of Public Health graduate program in the future to continue to raise awareness of mesothelioma, asbestos, and other toxic chemicals.

Ken Takahashi, MD, PhD is the Professor of Environmental Epidemiology and Director of WHO Collaborating Centre for Occupational Health at the University of Occupational and Environmental Health (UOEH) in Japan. Ken graduated from School of Medicine, Keio University in 1983 (MD) and received his PhD from UOEH and MPH from University of Pittsburgh. He specializes in epidemiologic research of occupational diseases, with special interest on Asbestos Disease Awareness Organization is a registered 501(c)(3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.251.7477 www.AsbestosDiseaseAwareness.org


2014 ADAO Conference Biographies: Honorees, Speakers and ADAO Leadership occupational lung diseases, and asbestos diseases in particular. He has served as consultant and advisor to WHO and ILO, and examiner/advisor to academic institutes of several Asian countries. He has been on the Board of the International Commission of Occupational Health (ICOH) twice and is currently President of the Asian Association for Occupational Health (2011-2014). Ken is a WHO (2012-2015)-designated expert on Chemical Safety (Environmental Epidemiology) for Roster of Experts, International Health Regulations (IHR, 2005). Lisa Rahe Thompson is from Nebraska and is a first time presenter at the ADAO National Conference. Lisa became an advocate for those impacted by Asbestos-exposure / Mesothelioma patients in 1997, when her brother, Bob Rahe, was diagnosed with the disease. Lisa and her siblings have worked hard to raise awareness in their home state, as well as organizing charitable functions to benefit the research and treatment of Mesothelioma. Lisa has been in Healthcare Management for over twenty years and has been involved with the ADAO for the past two years. Ellen Tunkelrott, Member of the ADAO Board of Directors, is a Senior Contracts Administrator, MBA, CFCM for a small aerospace and defense company in Los Angeles. She resides in Redondo Beach, California. She became friends with Linda and Alan Reinstein through local community volunteer activity. Linda and Ellen collaboratively brainstormed the virtual non-profit site www.asbestosdiseaseawareness.org, and Ellen developed the original site based on the concepts and direction from those sessions. She has a B.A. in Psychology from California State University, Long Beach, and an MBA from Loyola Marymount University. She is a Certified Paralegal and is licensed by the County of Los Angeles as a Legal Document Assistant. Ellen is also a commissioned Notary Public for the State of California. She is self-taught in web design and development. In her spare time, Ellen is an avid photographer, gardener and is a magician member of the prestigious Academy of Magical Arts, located in the world-renowned Magic Castle in Hollywood, California. Jasmine Uysal is currently a senior at the University of Southern California pursing a major in Health & Humanities: Global Health and a minor in Business. She is also a social media coordinator intern at the ADAO working under President and Co-founder Linda Reinstein. Jasmine has been involved in a number of health related projects including interning at St. Francis Medical Center and USC Keck Research Lab on cancer toxicity cell lines. She is also currently a server at the infamous USC wine/tapas bar Bacaro, LA. Jasmine has a true zest for life and believes in the power of one. In her free time she enjoys writing, reading, traveling, blogging and photography. Jasmine will graduate in May 2014 and is looking to pursue a master’s degree in International Health with the intention of working on improving public health care systems in underdeveloped countries.

Asbestos Disease Awareness Organization is a registered 501(c)(3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.251.7477 www.AsbestosDiseaseAwareness.org


2014 ADAO Conference Biographies: Honorees, Speakers and ADAO Leadership Susan Vento is a tireless anti-asbestos legislation advocate and widow to Minnesota’s Fourth Congressional District representative, Bruce F. Vento. Formerly a school teacher, she also served for 27 years as a staff member for the Minnesota Education and Education Minnesota, representing teachers and educational support professionals. Since her husband’s death, for the past 13 years, Susan has lobbied on asbestos and mesothelioma issues at both state and federal levels. She has also co-authored the book “100 Questions and Answers About Mesothelioma” for new patients and served on the board of the Mesothelioma Applied Research Foundation. Susan is the Director of Outreach for the Church of the Assumption in downtown St. Paul. Heather Von St James is a 45 year old wife to Cameron and mom to 8 year old Lily Rose. Diagnosed with Malignant Pleural Mesothelioma at the young age of 36, just 3 1/2 months after the birth of her one and only child, she now is an 8 year survivor of the disease. She is a strong advocate for The International Mesothelioma Program and Dr David Sugarbaker's work, the ADAO, and Mesothelioma Applied Research Foundation. She, along with her husband, blog for the Mesothelioma Cancer Alliance, and Huffington Post. She spends her spare time volunteering at her daughter's school, being with friends and family and living life to the fullest. Heather’s favorite quote is, "Life is a banquet and most poor suckers are starving to death." This is how she lives her life. Her goal is to bring about hope to mesothelioma patients and awareness regarding the disease. Yvonne Waterman Ph.D. LL.M., Dutch jurist, founder of Waterman Legal Consultancy, specializes in (comparative) employers’ liability for occupational diseases and asbestos liability. She is a frequent publicist, lecturer and speaker on asbestos liability matters worldwide and also GBAN Charter Member for the Netherlands.

Congressman Henry Waxman is the representative for California’s 33rd Congressional District. In January 2011, Rep. Waxman became the Ranking Member of the House Energy and Commerce Committee and has been a long standing leader on health and environmental issues. Rep. Waxman has fought for universal health insurance, comprehensive Medicare and Medicaid coverage, tobacco regulation, AIDS research and treatment, air and water quality standards, pesticide regulations, nursing home quality standards, women's health research and reproductive rights, affordable prescription drugs, and community rights to know about pollution levels. He was born September 12, 1939, in Los Angeles, and holds a bachelor's degree in political science from UCLA Asbestos Disease Awareness Organization is a registered 501(c)(3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.251.7477 www.AsbestosDiseaseAwareness.org


2014 ADAO Conference Biographies: Honorees, Speakers and ADAO Leadership and a J.D. from the UCLA Law School. He and his wife, the former Janet Kessler, have a daughter, a son, and five grandchildren. James Webber, PhD James S. Webber, PhD, is the former Laboratory Chief of the Laboratory of Inorganic and Nuclear Chemistry at the New York State Department of Health (NYSDOH). In 1979 he started the NYSDOH asbestos laboratory and went on to develop a variety of methods for asbestos analysis. Among those was a combination of paleolimnology, analytical TEM, and isotope dating to reconstruct airborne asbestos concentrations back to the 19th century. As a member of the EPA Science Advisory Board on Asbestos, he has chaired two Peer Review Panels and currently sits on the Libby Peer Review Panel. He chaired ASTM Committee D22 Air Quality (which includes asbestos) from 2008 to 2013 and currently chairs the United States Technical Advisory Group to ISO Technical Committee 146 Air Quality. He is senior author of more than two dozen peer-reviewed publications on asbestos and has presented more than fifty papers at scientific conferences around the world. In his capacity as a Technical Expert for asbestos, he has visited and evaluated almost 200 laboratories worldwide. He is an adjunct professor in the Department of Environmental Health Sciences of the School of Public Health at the State University of New York at Albany. Following his 2012 retirement from NYSDOH, Dr. Webber founded Webber Environmental-Health Consulting, LCC. Dr. Chris Weis serves as Science Advisor and Toxicology Liaison for the Director of the National Institute for Environmental Health Science (NIEHS) in Bethesda, Maryland where he represents NIEHS and the National Toxicology Program (NTP) on national and international committees, task forces, and ad hoc working groups. Prior to joining NIEHS in August 2010, Chris served for nine years as the forensic toxicologist for the National Enforcement Investigations Center (NEIC) in Denver, Colorado. Chris completed his Ph.D. in medical physiology and toxicology at Michigan State University in 1987 and served his postdoctoralfellowship at the University of Virginia School of Medicine, Department of Physiology and Biophysics. Heather White, Executive Director of Environmental Working Group, is a nationally-recognized expert on federal environmental law and policy and a campaign strategist with more than 15 years experience. EWG, the nation’s most effective environmental advocacy organization, uses game-changing, original research to help individuals, businesses, and governments make better decisions to protect public health and the environment. White guides EWG’s policy positions, advocacy strategies, communications plans, development and administration, manages EWG’s three offices and oversees the engagement of EWG’s 1.3 million online supporters. She leads the legislative activities of EWG Action Fund, EWG’s related lobbying organization. White graduated magna cum laude from the University of Tennessee College of Law, where she served as the managing editor of the Tennessee Law Review. She studied at the University of Nairobi law school in Nairobi, Kenya. She was an Echols Scholar at the University Asbestos Disease Awareness Organization is a registered 501(c)(3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.251.7477 www.AsbestosDiseaseAwareness.org


2014 ADAO Conference Biographies: Honorees, Speakers and ADAO Leadership of Virginia, where she earned a Bachelor of Arts degree in environmental science. Lou (Louise) Williams is a mother, grandmother, and wife living with mesothelioma. Lou lost her father aged 54, in 1985 to pleural mesothelioma. Ever since she has been a passionate and dedicated asbestos awareness advocate, working to raise support in her home country of Australia as well as around the globe. In 2001 she was diagnosed with peritoneal mesothelioma and bravely fought that with extensive surgery and chemotherapy. Unfortunately in 2009 she was then diagnosed with pleural mesothelioma, which required major extensive treatment yet again. Although her battle has been never ending, and quite often unforgiving, Lou has remained positive. Her strengths shine through with her giving of hope, love and support to victims and their care givers. On April 5th 2014 Lou will be awarded the Asbestos Disease Awareness Organization’s (ADAO), 2014 Alan Reinstein Award. This award recognizes Lou’s commitment to education, advocacy and support to countless patients and families around the world. Lou has served on boards of anti-asbestos support organizations since 2003, and is a valued member of the Bernie Banton Foundation team, serving as the Asbestos Awareness, Information and Support Officer. Jordan Zevon ADAO's tremendous National Spokesperson is a teacher, singer, and songwriter. Jordan was executive producer for his father, Warren Zevon's, final album The Wind. He also co-produced Enjoy Every Sandwich: The Songs of Warren Zevon, which features an all-star cast of singers and musicians. Jordan recently released his own EP entitled Jordan Zevon which is available from CDBaby.com. Jordan's immeasurable commitment to asbestos victims and concerned citizens has provided a united voice that will continue to help ensure that their rights are fairly represented and protected, while raising public awareness about the dangers of asbestos exposure and often deadly asbestos related diseases. Paul Zygielbaum is a veteran business executive whose career spans the aerospace, electric utility, electronic communications and medical device industries. In 2013 he retired from his position as co-founder and CEO of C8 MediSensors, a medical device start-up. Paul holds masters degrees in engineering and applied science from the California Institute of Technology and in business administration from Golden Gate University. Paul has published technical papers, articles and reviews in the fields of aerospace research, energy technology, and medicine. An experienced community volunteer, Paul has chaired the Sonoma County Human Services Commission and served on the boards of his local United Way and other organizations. Since his 2004 diagnosis with malignant peritoneal mesothelioma, Paul and his wife, Michelle, have become activists in grassroots campaigns to ban asbestos, to protect the rights of asbestos-related disease victims and their families, and to improve medical treatment and seek cures. Paul and Michelle have three grown children and five grandchildren.

Asbestos Disease Awareness Organization is a registered 501(c)(3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.251.7477 www.AsbestosDiseaseAwareness.org


ADAO Board and Leadership ADAO Board of Directors Doug Larkin Dr. Freddi Segal – Gidan Ellen Tunkelrott Linda Reinstein Laurie Rice

ADAO Leadership ADAO President/CEO: Linda Reinstein ADAO Communication Director: Kim Cecchini ADAO National Spokesperson: Jordan Zevon ADAO Celebrity Board Co-Chair: Barbara McQueen ADAO Executive Assistant: Herman Hamilton The Asbestos Disease Awareness Organization

1525 Aviation Boulevard, Suite 318 • Redondo Beach • California • 90278 • (310) 251-7477 “United for Asbestos Disease Awareness, Education, Advocacy, Prevention, and Community Support” www.AsbestosDiseaseAwareness.org


ADAO Science Advisory Board Science Advisory Board Co-Chairmen

Arthur Frank, MD, PhD Richard Lemen, PhD, MSPH

Science Advisory Board Members

Brad Black, MD Barry Castleman, ScD Raja Flores, MD Michael Harbut, MD, MPH, FCCP Hedy Kindler, MD L. Christine Oliver, M.D. The Asbestos Disease Awareness Organization

1525 Aviation Boulevard, Suite 318 • Redondo Beach • California • 90278 • (310) 251-7477 “United for Asbestos Disease Awareness, Education, Advocacy, Prevention, and Community Support” www.AsbestosDiseaseAwareness.org


10th Annual International Asbestos Awareness Conference Leadership April 4 – 6, 2014 ADAO BOARD OF DIRECTORS Freddi Segal – Gidan, PA, PhD Doug Larkin Linda Reinstein Laurie Rice Ellen Tunkelrott SCIENCE ADVISORY BOARD Co-Chairs: Arthur L. Frank, MD, PhD and Richard Lemen, PhD, MSPH Brad Black, MD Barry Castleman, ScD Raja Flores, MD Michael Harbut, MD, MPH, FCCP Hedy Kindler, MD L. Christine Oliver, M.D. AAC COMMITTEE CHAIRPERSONS Agenda & Sponsors Capitol Tours Communications Conference Liaison Executive Assistant Interns Logistics Marriott Arrangements National Spokesperson Photographer Saturday Dinner Sunday Brunch Videographer

Linda Reinstein Herman Hamilton Kimberly Cecchini Ellen Costa Herman Hamilton Cortney Segmen and Jasmine Uysal Suzanne Dupree Herman Hamilton Jordan Zevon Tony Rich Tracey Miller Ellen Tunkelrott Sue Ann Taylor, Zeel TV

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · (310) 251-7477


10th Anniversary Messages for the ADAO

“Mr. Meso has been with me for 18 years. He slept quietly for many years, but he awoke! No matter what I do, he haunts me. He consumes my life. I'm tired...but will continue to try to "Outwit, Outplay, and Outlast as long as God willing.” Jill Vaughn, 2005 Tribute of Inspiration Honoree “The work of ADAO continues to be an increasingly essential element in the armamentarium of those who fight the diseases and cancers caused by asbestos.” Dr. Michael Harbut, 2007 Dr. Selikoff Lifetime Achievement Honoree “Congratulations to everyone associated with Asbestos Disease Awareness Organization, an important resource in the fight against asbestos poisoning and in sustaining affected families.” Paul Zygielbaum and Michelle Zygielbaum, 2007 Tribute of Inspiration Honoree

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


“It is thanks to the tireless efforts of organizations like Asbestos Disease Awareness Organization that we can say proudly that Canada no longer produces Asbestos. Much accomplished - much yet to achieve.” Patrick Martin, Member of Canadian Parliament, 2007 Tribute of Unity Honoree “I salute the continuing activity of ADAO. Much has been accomplished and still more today as witnessed by the global map of asbestos use. Bravo and on to the next decade.” Dr. Peter Orris, 2007 Keynote Speaker “It has been an honor to be associated with Asbestos Disease Awareness Organization for many years; a great and important organization.” Dr. Arthur Frank, 2012 Dr. Selikoff Lifetime Achievement Honoree "ADAO is filling a void, here-to-fore never addressed in a coordinated fashion, by amplifying the voices of thousands of victims and their families of asbestos-related disease. Since its beginning 10 years ago ADAO has made sure these voices have been heard throughout the Halls of Congress, in the Houses of Parliament, propelled onto the World Stage far beyond the shores of the United States through Europe, Asia, Australia, Africa, South America. ADAO will continue to be a leader in the fight for the elimination of all asbestos-related diseases." Dr. Richard Lemen, 2012 Dr. Selikoff Lifetime Achievement Honoree “With best wishes to Linda and Asbestos Disease Awareness Organization in its tireless struggle to rid the world of asbestos and asbestos disease. Congratulations to the worthy honorees.” Dr. Joel Shufro, 2012 Tribute of Inspiration Honoree “Some of the proudest moments in my professional and personal life have been working with Asbestos Disease Awareness Organization on the fight to ban asbestos, and the pain, death and grief it causes.” Dr. Celeste Monforton, 2013 Dr. Selikoff Lifetime Achievement Honoree “You cannot rest ADAO until Asbestos is banned throughout the world. Mesothelioma is incurable. Keep our children safe.” Mavis Nye, 2013 Alan Reinstein Honoree “If you poison your boss each day, it's called murder. If your boss poisons you a little each day, it's called a `threshold limit value' - James Keogh This must stop.” Dr. David Egilman, 2014 Dr. Selikoff Lifetime Achievement Honoree “Thank you to ADAO for all the global work that you do. I am very honoured to be a recipient of this award. I am accepting this on behalf of all warriors downunder.” Lou Williams, 2013 Alan Reinstein Honoree “Wow can remember the first time we were in dc was just a handful of us....Way to go ADAO!” Debi Swagart, USA “Getting stronger!” Paul Zenak, USA “You are advocates for the future generations. Share the truth of this deadly killer. Knowledge is power.” Laura Auciello, USA “Congrats ADAO! Look forward to working with this wonderful organization raising awareness for many more years to come.” Domani Tripam, USA “It's time to ban asbestos use and quit killing our parents, brothers, sisters and friends. No more excuses.” Missy Bowles, USA “Cheers to a daring decade of expert collaboration, amazing volunteers, & courageous spirits. PEACE.” Tony Rich, USA

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


The Asbestos Disease Awareness Organization

2005 – 2014 ADAO Honorees 2005 ADAO Asbestos Awareness Conference Honorees – Washington, DC Gayla Benefield, Tribute of Hope Award Laurie Kazan-Allen, Tribute of Unity Award Jill Vaughn, Tribute of Inspiration Award

2006 ADAO Asbestos Awareness Conference Day Honorees – New York City, NY The Honorable Harry Reid, United States Senator, Tribute of Hope Award Paul Brodeur, Dr. Selikoff Lifetime Achievement Award Dr. Yasunosuke Suzuki, Dr. Selikoff Lifetime Achievement Award James Fite, Tribute of Unity Award The Honorable Chuck Strahl, Member of Parliament, Canada, Tribute of Inspiration Paul Brodeur, Keynote Speaker

2007 ADAO Asbestos Awareness Conference Honorees – Philadelphia, PA The Honorable Patty Murray, United States Senator, Tribute of Hope Dr. Michael Harbut, Dr. Selikoff Lifetime Achievement Award Patrick Martin, Member of Canadian Parliament, Tribute of Unity Award Paul Zygielbaum and Michelle Zygielbaum, Tribute of Inspiration Award Les Skramstad, honored posthumously, The Alan Reinstein Award Dr. Peter Orris, Keynote Speaker

2008 ADAO Asbestos Awareness Conference Honorees Honorees – Detroit, MI Dr. Aubrey Miller, Tribute of Hope Barry Castleman, Dr. Selikoff Lifetime Achievement Award Canadian Auto Workers, Tribute of Unity Award John Thayer, Former US Capitol Tunnel Worker Supervisor and Asbestos Victim, Tribute of Inspiration Award John McNamara, honored posthumously, The Alan Reinstein Award Terry Lynch, Int’l Vice President, Political & Legislative Director/Health Hazard Administrator, Insulators Union, Keynote Speaker

2009 ADAO Asbestos Awareness Conference Honorees – Manhattan Beach, CA The Honorable Barbara Boxer, United States Senator, Tribute of Hope Dr. Stephen Levin, Dr. Selikoff Lifetime Achievement Award Peg Seminario, AFL/CIO, Tribute of Unity Award Pralhad Malvadkar and Raghunath Manwar, Tribute of Inspiration Award Dominick Marzicola, honored posthumously, The Alan Reinstein Award Andrew Schneider, Keynote Speaker

2010 ADAO Asbestos Awareness Conference Honorees Honorees – Chicago, IL The Honorable Richard Durbin, United States Senator, Tribute of Hope Award Army Archerd, Warren Zevon "Keep me in Your Heart" Tribute Memorial Award

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


Dr. Hedy Kindler, Dr. Selikoff Lifetime Achievement Award Center of Asbestos Related Disease (CARD), Tribute of Unity Award Fernanda Ginnasi, Tribute of Inspiration Award June Briet, honored posthumously, The Alan Reinstein Award Jordan Barab, Keynote Speaker

2011 ADAO Asbestos Awareness Conference Honorees – Atlanta, GA The Honorable Max Baucus, United States Senator, Tribute of Hope Award Ron Cyrus, Warren Zevon "Keep me in Your Heart" Award Dr. Guadalupe Aguilar Madrid, Dr. Selikoff Lifetime Achievement Award Environmental Information Association, Tribute of Unity Award Sugio Furuya, Tribute of Inspiration Award Julie Gundlach, The Alan Reinstein Award Dr. Linda Rae Murray, Keynote Speaker

2012 ADAO Asbestos Awareness Conference Honorees – Manhattan Beach, CA The Honorable Steve Cohen (D-TN), U.S. House of Representatives, Tribute of Hope Award Actor Steve McQueen, Warren Zevon "Keep me in Your Heart" Award Dr. Arthur Frank, Dr. Selikoff Lifetime Achievement Award Dr. Richard Lemen, Dr. Selikoff Lifetime Achievement Award Associazione Familiari Vittime Amianto (AFEVA), Tribute of Unity Award Joel Shufro, Tribute of Inspiration Award Debbie Brewer, The Alan Reinstein Award Larry Davis, The Alan Reinstein Award Matt Peacock, Keynote Speaker

2013 ADAO Asbestos Awareness Conference Honorees – Washington, D.C. The Honorable Lois Capps (D-CA), U.S. House of Representatives, Tribute of Hope Award Jordan Zevon, "Keep me in Your Heart" Award Dr. Celeste Monforton, Dr. Selikoff Lifetime Achievement Award International Association of Heat and Frost Insulators and Allied Workers, Tribute of Unity Award Karen Banton, Tribute of Inspiration Award Rob Cagle, The Alan Reinstein Award Mavis Nye, The Alan Reinstein Award Dr. Aubrey Miller, Keynote Speaker

2014 ADAO Asbestos Awareness Conference Honorees – Washington, D.C. The Honorable Henry Waxman, U.S. House of Representatives, Tribute of Hope Award Congressman Bruce Vento, Warren Zevon "Keep me in Your Heart" Award Dr. David Egilman, Dr. Selikoff Lifetime Achievement Award Dr. Ken Takahashi, Dr. Selikoff Lifetime Achievement Award National Association for the Defense of Asbestos Victims (Andeva), Tribute of Unity Award Bill Ravanesi Tribute of Inspiration Award Janelle Bedel, honored posthumously, The Alan Reinstein Award Heather Von St. James, The Alan Reinstein Award Lou Williams The Alan Reinstein Award Rear Admiral Boris D. Lushniak, Acting U.S. Surgeon General, Keynote Speaker

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


The Asbestos Disease Awareness Organization sincerely thanks

Emily Bankhead

for hosting the Patient and Family Private Lunch and D.C.Tour

in loving memory of Gordon


Individual 2014 Donors Diamond Donor Emily Bankhead Emerald Donors Tom O’Neil Memorial Donations from family and friends Tom’s Friends at the Antelope Club in Clearwater Florida The Traon and Maude Crandall Foundation The Von St. James Family Jill Cagle

Sapphire Donors Marli Beer Michele Mikulic

Garnet Donors Esther O’Driscoll Paul & Yvonne Hall


2014 ADAO Sponsors •

Platinum Sponsors •

Silver Sponsor • EARLY

LUCARELLI SWEENEY

MEISENKOTHEN


“ADAO’s Amazing Journey Over the Past Ten Years” by Emily Reinstein After re-reading my 2010 conference message, I felt so many emotions as my own words reminded me of ADAO’s amazing journey over the past ten years. It has been an absolute pleasure to be a part of such an impactful organization and to watch both the organization itself and the people involved change over the years. The bond our ADAO family continues to amaze me. Be it a Facebook post about mesothelioma hardships with encouraging comments, condolences shared around the world, or even a funny picture of a patient’s child, the ADAO community has been there for each other through thick and thin. ADAO has made unbelievable progress in the My mom and me in Retiro Park, Madrid. international community in raising awareness, building a global community, and working for a ban in the U.S. After ten resolutions, ten conferences, and countless incredible presentations around the world, I cannot wait to see what is in store for the ADAO community. As the daughter of the fearless Linda Reinstein, I can verify that the amount of blood, sweat, and tears, – or maybe more accurately: broken bones (ask her about her thumb!) -- international Skype calls, and nonstop hours of working put into this cause is absolutely astounding. I know that none of the success of the organization would be possible without the ADAO team of passionate volunteers and incredible community members. However, there is still a great deal of progress to be made. It pains me to hear my intelligent and scholarly friends say they have no idea what asbestos is, that it hasn’t been banned, and, “Oh wait, that’s why my high school got remodeled a few years ago?” Little do they know that since my father was diagnosed with mesothelioma in 2003, the U.S. has consumed more than 20,000 tons of asbestos, and imports continue today. Little do they know that in eleven years, more than 110,000 Americans have died from asbestos exposure. These are some frightening and eye-opening facts. It’s about time that Congress and our civil society listen and take action. As I reflect on ADAO’s 10th anniversary, I can’t help but revisit my thoughts from when I was eleven. I could never fully understand why something that kills thousands of people and damages families around the world is legal in the U.S. As a 21-year-old, I cannot believe this has not changed in ten years. However, I know that if change is going to happen, we, the passionate, outspoken, strong, and brave ADAO community will certainly be at the forefront of a better tomorrow. I am sad to miss the conference as I am studying abroad in Madrid until May, but I am sending all my love and support your way. Cheers to continued success in year eleven! The Asbestos Disease Awareness Organization

1525 Aviation Boulevard, Suite 318 • Redondo Beach • California • 90278 • (310) 251-7477 “United for Asbestos Disease Awareness, Education, Advocacy, Prevention, and Community Support” www.AsbestosDiseaseAwareness.org


Alan Reinstein  1939  –  2006   “Every  Daughter  Deserves  a  Dance  with  her  Father”    Emily  Reinstein  (written  in  2010)    

It’s hard  to  believe  that  6  years  ago,  my  mom  and  I  flew  to  Washington  D.C.  out  of  anger  and   hope  for  a  change  in  our  country.    We  had  no  expectations  and  couldn’t  even  fathom  walking  down  the   halls  of  the  Senate.    But  now,  I  constantly  overhear  my  mom  on  the  phone  with  representatives  from   Senators  and  we  have  personally  met  with  Senator  Boxer.    Even  more  importantly,  ADAO  has  embodied   the  need  for  international  change  by  connecting  with  representatives  from  countries  such  as  England,   South  Africa,  India,  and  many  others.   With  the  help  of  this  international  community,  our  common  goal  of  prevention,  education,  and   advocacy  are  closer  than  ever.    The  accomplishments  of  ADAO  are  an  outstanding  example  of  how   turning  anger  into  action  can  be  more  beneficial  than  simply  complaining.    All  the  volunteers  involved   in  ADAO  have  all  gone  through  their  own  personal  struggles,  which  add  personality  to  this  organization   and  fuel  others  to  make  a  powerful  change.   My  personal  story  started  at  a  very  young  age.    I  was  ten  when  my  dad,  Alan,  was  diagnosed   with  Mesothelioma.    I  had  absolutely  no  idea  what  that  word  meant  or  even  how  to  pronounce  it.    After   coming  home  from  summer  camp,  I  was  sat  down  at  our  kitchen  table  and  told  that  Daddy  had  cancer,   but  that  he  would  be  okay.    My  parents  did  an  incredible  job  of  hiding  the  negative  events  going  on  in   our  life  and  making  my  life  go  on  with  little  change.    After  a  while  and  a  few  surgeries  here  and  there,   my  true  life  began  to  emerge.    My  dad  had  one  lung,  and  was  hanging  on  with  a  thin  string  of  hope,   which  was  my  mom  and  me.    He  passed  away  on  May  22,  2006.  It  was  the  day  of  the  season  finale  of  our   favorite  T.V.  show,  24.    I  was  unable  to  finish  that  season  with  my  father  and  realized  that  many  other   unfinished  things  involving  him  would  come  in  my  future,  such  as  my  graduations  and  wedding.     Through  this  time  in  my  life  however,  my  family  was  able  to  make  a  change  in  our  government   as  well  as  in  the  lives  of  other  families.    When  my  mom  and  I  went  to  D.C.  for  the  first  time,  we   wandered  the  halls  with  a  picture  of  my  dad  and  me  dancing  together  at  a  Bat   Mitzvah,  asking  to  meet  with  representatives.    Obviously,  we  didn’t  quite   understand  how  things  worked  in  the  legislative  process.    All  we  had  going  for   us  was  the  picture  and  my  mom’s  quote,  “Every  daughter  deserves  to  dance   with  her  father  at  her  wedding.”   But  now,  ADAO  is  able  to  call  a  Senator,   schedule  an  appointment,  and  talk  to  respected   officials  with  ease.    ADAO  has  deservedly  earned   the  title  of  a  highly  valued  nonprofit  volunteer  organization.    The  change   that  has  been  made  internally  is  visible  and  tangible.    I  am  proud  to  say  that   I  am  a  part  of  this  wonderful  organization  and  hope  that  the  children  of   victims  will  carry  on  this  legacy  for  years  to  come.    It  is  very  true  that  the   youth  is  our  future  and  we  are  well  aware  of  this  fact.    I,  personally,  have   never  been  pressured  to  do  anything  asbestos-­‐‑related;  I  always  do  it  out  of   my  own  will.    My  wish  is  for  no  family  or  individual  to  go  through  what  my   family  and  countless  others  have.       So  from  individuals  fighting  for  the  truth  and  change  to  a  large   organization  with  respect  in  the  legislative  community,  this  international   family  has  and  will  continue  to  represent  and  aid  those  affected  by  asbestos.    Ignorance  has  never,  and   will  never  be,  bliss.        


Monday, April 1, 2013 Statement by the U.S. Surgeon General Dr. Regina Benjamin on National Asbestos Awareness During National Asbestos Awareness Week, April 1-7, I urge Americans to learn about the dangers of asbestos exposure. Asbestos is a mineral fiber that occurs naturally in our environment; in rock and in soil. Because of its fiber strength and heat resistance, asbestos has traditionally been used in a variety of building construction materials, as insulation and as a fire retardant. Activity that disturbs asbestos causes small asbestos fibers to float in the air. Inhaling these fibers leads to asbestos-related diseases. Three of the major health effects associated with asbestos exposure are lung cancer; mesothelioma, a rare form of cancer that is found in the thin lining of the lungs, chest, abdomen and heart; and asbestosis, a serious progressive, long-term, non-cancer disease of the lungs. Anyone who disturbs asbestos is at risk. However, it is of special concern for construction, insulation, and demolition workers, pipefitters, boilermakers and others who might disturb asbestos found in old buildings or equipment as part of their work. The hazard is also very real to home handymen, first-responders, and community volunteers. Preventing the damage caused by asbestos is important to help keep Americans healthy and safe in our homes. Advancing Healthy Housing – A Strategy for Action is a recent report released by several federal agencies that unifies federal action to advance healthy housing, demonstrating the connection between housing conditions and residents’ health. It promotes strategies and methods intended to reduce in-home health hazards such as asbestos in a cost-effective manner. The greater the exposure to asbestos, the greater the chance of developing harmful health effects. If you think you have been exposed to asbestos, I encourage you to speak to your health care professional. Together, we can prevent the dangers associated with asbestos. We can create healthier homes, healthier workplaces and a healthier America. To learn more about asbestos and asbestos related diseases, please visit: http://www.atsdr.cdc.gov/asbestos/ http://www.cdc.gov/niosh/topics/asbestos/ http://www.epa.gov/asbestos/ To learn more about Healthy Housing and the Strategy for Action, please visit: http://healthyhomes.hud.gov ADAO salutes the United States Senate for “urging the Surgeon General to warn and educate people about the public health issue of asbestos exposure.”


Senate Resolution 336 IN THE SENATE OF THE UNITED STATES 113th CONGRESS 2nd Session

Designating the first week of April 2014 as ‘National Asbestos Awareness Week’. Whereas dangerous asbestos fibers are invisible and cannot be smelled or tasted; Whereas the inhalation of airborne asbestos fibers can cause significant damage; Whereas asbestos fibers can cause cancer such as mesothelioma, asbestosis, and other health problems; Whereas symptoms of asbestos-related diseases can take 10 to 50 years to present themselves; Whereas the projected life expectancy for an individual diagnosed with mesothelioma is between 6 and 24 months; Whereas generally, little is known about late-stage treatment of asbestos-related diseases, and there is no cure for such diseases; Whereas early detection of asbestos-related diseases may give some patients increased treatment options and might improve their prognoses; Whereas the United States has substantially reduced its consumption of asbestos, yet continues to consume almost 1100 metric tons of the fibrous mineral each year for use in certain products throughout the United States; Whereas asbestos-related diseases have killed thousands of people in the United States; Whereas while exposure to asbestos continues, safety and prevention of asbestos exposure already has significantly reduced the incidence of asbestos-related diseases and can further reduce the incidence of such diseases; Whereas asbestos has been a cause of occupational cancer; Whereas thousands of workers in the United States face significant asbestos exposure; Whereas thousands of people in the United States die from asbestos-related diseases every year; Whereas a significant percentage of all asbestos-related disease victims were exposed to asbestos on naval ships and in shipyards; Whereas asbestos was used in the construction of a significant number of office buildings and public facilities built before 1975; Whereas people in the small community of Libby, Montana, suffer from asbestos-related diseases, including mesothelioma, at a significantly higher rate than people in the United States as a whole; and Whereas the establishment of a `National Asbestos Awareness Week' would raise public awareness about the prevalence of asbestos-related diseases and the dangers of asbestos exposure: Now, therefore, be it Resolved, That the Senate -1) designates the first week of April 2014 as ‘National Asbestos Awareness Week’; 2) urges the Surgeon General to warn and educate people about the public health issue of asbestos exposure, which may be hazardous to their health; and 3) respectfully requests the Secretary of the Senate to transmit a copy of this resolution to the Office of Surgeon General. The Asbestos Disease Awareness Organization 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · www.adao.us


Global Asbestos Awareness Week Declaration for a Worldwide Asbestos Ban Whereas Global Asbestos Awareness Week, April 1-7, has been designated as a week to raise awareness about the dangers of asbestos and to ban asbestos; Whereas asbestos is a known human carcinogen and has been classified by the International Agency for Research on Cancer as a Group 1 human carcinogen; Whereas inhalation of airborne asbestos fibers of all types can cause cancer such as mesothelioma (cancer of the lung lining), gastrointestinal, laryngeal, ovarian and lung cancer, as well as asbestosis and other respiratory problems; Whereas no safe minimum level of exposure has been identified for any type of asbestos; Whereas asbestos-related diseases can take 10 to 50 years to present themselves; Whereas the usual expected survival time for those diagnosed with mesothelioma is between 6 and 24 months; Whereas workers’ family and community members are also at risk of disease from asbestos fibers brought into their homes or otherwise released into the environment; Whereas the former U.S. Surgeon General Dr. Regina Benjamin stated, “Anyone who disturbs asbestos is at risk”; Whereas the World Health Organization states, “More than 107,000 people die each year from asbestos-related lung cancer, mesothelioma and asbestosis resulting from occupational exposures” – which translates into around 300 people each day from preventable asbestos-caused diseases; Whereas the World Health Organization states, “125 million people in the world are exposed to asbestos at the workplace”; Whereas the World Health Organization states, “One in every three deaths from occupational cancer is estimated to be caused by asbestos”; Whereas annually United States asbestos consumption continues around the 1,000-ton level; Whereas the United States stopped mining asbestos in 2002 and Canada stopped in 2011, but the lack of asbestos bans in both countries allows imports of asbestos and asbestos products: Whereas in 2012 all asbestos imported and used in the United States was chrysotile, solely sourced from Brazil; The Asbestos Disease Awareness Organization

1525 Aviation Boulevard, Suite 318 • Redondo Beach • California • 90278 • (310) 251-7477 “United for Asbestos Disease Awareness, Education, Advocacy, Prevention, and Community Support” www.AsbestosDiseaseAwareness.org


Whereas the world production of asbestos from 1900 to 2013 totaled nearly 200,000,000 metric tons; Whereas in 2012, Russia, China, Brazil, and Kazakhstan were the largest asbestos producers in the world; Whereas in the global annual production of asbestos is an estimated 2,000,000 tons; Whereas a global network of lobby groups have spent nearly $100 million since the mid-1980s to preserve the international asbestos market; Whereas over 90% of the world production of chrysotile asbestos is used in the manufacture of asbestoscement, in the form of pipes, sheets and shingles; Whereas there are numerous proven substitutes for asbestos products; Whereas more than 50 countries have banned asbestos, but neither the United States nor Canada have banned asbestos; Whereas the U.S. Toxic Substances Control Act of 1976 has failed to ban asbestos; Therefore be it urgently resolved that we, the signatories of the Global Asbestos Awareness Week Declaration for a Worldwide Asbestos Ban, support the World Health Organization (WHO), in collaboration with the International Labour Organization and with other intergovernmental organizations and civil society to work towards elimination of asbestos-related diseases, in the following WHO strategic directions: • by recognizing that the most efficient way to eliminate asbestos-related diseases is to stop the use of all types of asbestos; • to provide information about solutions for replacing asbestos with safer substitutes and developing economic and technological mechanisms to stimulate its replacement; • to take measures to prevent exposure to asbestos in place and during asbestos removal (abatement), and; • to improve early diagnosis, treatment, and social and medical rehabilitation of asbestos-related diseases and to establish registries of people with past and/or current exposures to asbestos. The List of Signatories will be Published on April 7, 2014

The Asbestos Disease Awareness Organization

1525 Aviation Boulevard, Suite 318 • Redondo Beach • California • 90278 • (310) 251-7477 “United for Asbestos Disease Awareness, Education, Advocacy, Prevention, and Community Support” www.AsbestosDiseaseAwareness.org


ADAO National Spokesman Jordan Zevon Jordan Zevon, ADAO's tremendous National Spokesman, is a teacher, singer, and songwriter. After his father, rock musician Warren Zevon, passed away from mesothelioma in 2003, Jordan accepted Warren's two posthumous Grammy Awards for Best Rock Vocal Performance and Best Contemporary Folk Album. Jordan was executive producer of his father's, final album The Wind. He also co-produced Enjoy Every Sandwich: The Songs of Warren Zevon, which features an all-Star cast of singers and musicians. Jordan released a self-titled EP and the full-length album, “Inside’s Out” featuring, “The Joke’s On Me” which he performed on The Late Show with David Letterman. Jordan has dedicated a tremendous amount of time and talent to help raise awareness about the dangers of asbestos. A passionate advocate, he works tirelessly with ADAO. Jordan has traveled to Washington DC countless times to join ADAO in meetings with Congress and key administration staff. He was instrumental in his leadership role of ADAO’s product testing that uncovered dangerous asbestos fibers in children’s toys. He regularly presents before the press, and on behalf of ADAO to help educate the public about asbestos dangers and share his personal story. He has donated his wonderful musical talents at ADAO and non-ADAO events, and participated in public service announcements – beautifully advocating through his wonderful gift. Jordan's immeasurable commitment to asbestos victims and concerned citizens has provided a united voice that will continue to help ensure that their rights are fairly represented and protected, while raising public awareness about the dangers of asbestos exposure and often deadly asbestos related diseases. The Asbestos Disease Awareness Organization is grateful Jordan is part of our family. Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


2014 ADAO Awards and Special Recognition Congressman Henry Waxman will be presented with the Tribute of Hope Award for his steadfast commitment to public health and safety. *via video Congressman Bruce Vento will be honored posthumously with the Warren Zevon “Keep me in Your Heart” Memorial Tribute for his countless years of public service as a legislator and public servant. Dr. David Egilman will be recognized with the Dr. Irving Selikoff Lifetime Achievement Award in honor of his tireless dedication to increasing awareness about asbestos to eliminate diseases and his unending support of the Asbestos Disease Awareness Organization. Dr. Ken Takahashi will be recognized with the Dr. Irving Selikoff Lifetime Achievement Award in honor of his tireless dedication to increasing awareness about asbestos to eliminate diseases and his unending support of the Asbestos Disease Awareness Organization. Bill Ravanesi will be presented with the Tribute of Inspiration Award for his untiring efforts to protect workers’ rights and seek justice for asbestos sufferers and their families. National Association for the Defense of Asbestos Victims (ANDEVA) will receive the Tribute of Unity Award for its relentless efforts, both nationally and internationally, to protect workers’ occupational safety and health. Janelle Bedel, who tragically lost her battle with mesothelioma in 2013, will be recognized with the Alan Reinstein Award for her commitment to education, advocacy, and support to countless patients and families. Heather Von St. James, a mesothelioma patient, will be recognized with the Alan Reinstein Award for her commitment to education, advocacy, and support to countless patients and families. Lou Williams, a mesothelioma patient, will be recognized with the Alan Reinstein Award for her commitment to education, advocacy, and support to countless patients and families. Michael Bradley, a mesothelioma patient, will be recognized with the 2014 Special Recognition of Valor Award for his unwavering commitment to serving as a role model of bravery and unity. Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


Keynote Speaker Rear Admiral Boris D. Lushniak Acting U.S. Surgeon General ADAO is honored to welcome Rear Admiral Boris D. Lushniak, MD, MPH, Acting United States Surgeon General, as our Keynote Speaker. Dr. Lushniak articulates the best available scientific information to the public regarding ways to improve personal health and the health of the Nation. He also oversees the operations of the U.S. Public Health Service Commissioned Corps, comprised of approximately 6,700 uniformed health officers who serve in locations around the world to promote, protect, and advance the health and safety of our Nation. Dr. Lushniak served as Deputy Surgeon General from November 2010 until July 17, 2013, when he assumed the duties of Acting United States Surgeon General. RADM Lushniak was introduced to the USPHS in 1983 as a senior medical student when he completed an elective with the Indian Health Service in Winslow, Arizona. He began his USPHS career in 1988 as a Lieutenant, entering the service as part of the Epidemic Intelligence Service at the Centers for Disease Control and Prevention and initially was stationed with the CDC’s National Institute for Occupational Safety and Health in Cincinnati, Ohio where he conducted epidemiological investigations of workplace hazards. In 1990 he was accepted for CDC’s long term training program and completed a three-year residency in dermatology at the University of Cincinnati after which he established an occupational skin disease program at NIOSH. In 2004 he transitioned from CDC to the Food and Drug Administration as the Chief Medical Officer of the Office of Counterterrorism and was appointed FDA Assistant Commissioner in 2005. While at FDA he was deployed after Hurricane Katrina to serve as the Department of Health and Human Services representative in San Antonio and also served as the FDA Deputy Incident Commander for the 2009 pandemic response. In 2010 RADM Lushniak completed his tour with the FDA as the FDA Assistant Commissioner, Counterterrorism Policy and Director of the Office of Counterterrorism and Emerging Threats within the Office of the Commissioner. “I am very happy that my old friend and Acting Surgeon General Boris Lushniak will be joining us as our Keynote Speaker,” said Dr. Richard A. Lemen, Assistant Surgeon General, USPHS (Ret) and ADAO Science Advisory Board Co-Chairman. “It is certainly an honor that the leader of the Nation’s Premier Public Health Agency will share with us his thoughts about asbestos-related diseases and their elimination.”

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


Tribute of Hope Award Congressman Henry Waxman Congressman Henry Waxman will be presented with the Tribute of Hope Award for his steadfast commitment to public health and safety. Waxman represents California's 33rd Congressional District, which includes cities and communities in the Los Angeles area. In January 2011, Congressman Waxman became the Ranking Member of the House Energy and Commerce Committee. From 2009 to 2010, he was the Chairman of the Energy and Commerce Committee. From 1979 to 1994, he chaired the Energy and Commerce Committee's Subcommittee on Health and the Environment, and served as the Subcommittee's Ranking Member in 1995 and 1996. A leader on health and environmental issues, Congressman Waxman has fought for universal health insurance, comprehensive Medicare and Medicaid coverage, tobacco regulation, AIDS research and treatment, air and water quality standards, pesticide regulations, nursing home quality standards, women's health research and reproductive rights, affordable prescription drugs, and community rights to know about pollution levels. Congressman Waxman has sponsored a long list of health bills that have been enacted into law. These measures include the Patient Protection and Affordable Care Act (comprehensive health care reform), the Family Smoking Prevention and Tobacco Control Act, the Ryan White CARE Act, the Nutrition Labeling and Education Act, and the Breast and Cervical Cancer Mortality Prevention Act. “It was a tremendous honor for me, a proud constituent living in Congressman Waxman’s District, to stand beside him,” said ADAO Co-Founder and President Linda Reinstein, after testifying about the dangers of asbestos at the U.S. House Energy and Commerce Subcommittee on Environment and the Economy in 2013. Only a few months later, Congressman Waxman announced that he would be retiring after 40 years of public service. “ADAO is one of many nonprofit organizations that will miss him dearly,” continued Reinstein. “We are delighted to honor Congressman Waxman and his inspirational career with the Tribute of Hope Award.” In the announcement of his retirement, Congressman Waxman wrote: “It has been an extraordinary experience. The House is a remarkable institution and it is an honor to have a chance – every day – to make a difference in the lives of my constituents and families across our country.”

Thank you, Congressman, for making a difference in the lives of asbestos victims. Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


Keynote Speaker Susan Vento “It is an honor to welcome Susan Vento as our Keynote Speaker in ADAO’s tenth anniversary year,” said ADAO Co-Founder and President Linda Reinstein. “I have had the privilege of knowing Sue for almost as long as ADAO has been in existence. Sadly, she and I share the heartbreaking loss of our husbands to mesothelioma. Sue speaks out passionately on behalf of asbestos victims. It is my great pleasure to count her among my dear friends.” Susan and Bruce Vento were tireless advocates on behalf of those who could not help themselves. He was a U.S. Congressman who represented Minnesota’s Fourth Congressional District for nearly 24 years. She was an elementary school teacher who served for more than 27 years as a staff member for the Education Minnesota Foundation, representing teachers and educational support professionals. Congressman Vento announced in February 2000 that he would not run for re-election after being diagnosed with mesothelioma. He passed away eight months later, in October of that same year. After Congressman Vento’s death, Susan became an advocate, educating others about mesothelioma and the dangers of asbestos. Congressman Vento was exposed to asbestos through his work as a laborer, decades before his public service. Over the past thirteen years, Susan has lobbied on asbestos and mesothelioma issues at both the state and federal levels, including aiding in the prevention of federal legislation that would have stripped patients and families of legal rights. She also co-authored the book “100 Questions and Answers About Mesothelioma” for new patients and is an active and outspoken member of the Asbestos Cancer Victims Rights Campaign. “Telling the stories of our loved ones' lives is our most powerful and effective organizing and lobbying tool - always has been, always will be,” stated Susan Vento. “These stories provide names, faces, and legacies . . . not just a statistic or a settlement, but a loved one who has been dealt the brutal blow of a cruel asbestos disease. Let's pledge to tell these stories every chance we get.” We are grateful to Susan and Bruce Vento for their years of public service and for joining us in telling those stories.

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


“Keep Me in Your Heart” Memorial Tribute Award

Congressman Bruce Vento Congressman Bruce Vento will be honored posthumously with the Warren Zevon “Keep Me in Your Heart” Memorial Tribute Award for his years of service as a legislator and public servant. From 1977 until his death from mesothelioma in 2000, Vento was a Democratic Congressman representing Minnesota’s Fourth Congressional District. Accepting the award on his behalf is his wife, Susan Vento, an asbestos victim advocate and ADAO keynote speaker. Congressman Vento’s legacy includes advocacy for our national parks, the environment and historic preservation, passage of the first federal legislation providing assistance to Americans who are homeless, especially children, and advocating for working men and women and their families. The Congressman’s paternal grandparents came from Italy, and his maternal grandparents from Germany. His mother and father were hard-working, first-generation Americans and strong union advocates who worked to provide their children with good educations and the better lives that so many parents of that generation valued. Vento took those values with him to Congress. When asked how ADAO could carry on her husband’s legacy, Ms. Vento replied that it is not just his legacy “but every American who dies from asbestos-related diseases should be honored with legislation that will reduce asbestos exposure to the lowest possible level with an emphasis on secondary, work-related and residential exposures.” Ms. Vento joins ADAO in supporting “legislation that will increase public awareness of the risks of asbestos and fund research for the diagnoses and treatments of mesothelioma, asbestosis and cancers.” Vento was a young husband and father supporting his family and working his way through college in St. Paul factories when he was exposed to asbestos. He had no idea his health and well-being were at risk until decades later. Before he was elected Congressman, Vento was a junior high science and social studies teacher. Fellow Congressman Jim Leach commented for an MPR article: “He brought a particular background as well as a particular concern for people that was really unique. Bruce, who had been one of the really fine teachers in Minnesota, became a teacher who came to Washington, who taught the Congress a lot about American life.” After Vento’s announcement that he would not seek an additional term due to his illness, President Bill Clinton praised the Congressman at a fundraiser in his honor, saying, “we love you and we are grateful.” ADAO enthusiastically agrees. Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


Dr. Irving Selikoff Lifetime Achievement Award Dr. David Egilman Dr. David Egilman will be recognized with the Dr. Irving Selikoff Lifetime Achievement Award in honor of his tireless dedication to increasing awareness about asbestos to eliminate diseases and his unending support of the Asbestos Disease Awareness Organization. Dr. Egilman is a Clinical Associate Professor of Family Medicine at Brown University, Alpert Medical School, and author of many scholarly articles including Exposing the “Myth” of ABC, and “Anything But Chrysotile”: A Critique of the Canadian Asbestos Mining Industry and McGill University Chrysotile Studies. He is the Editor-in-Chief of the International Journal of Occupational and Environmental Health. In just one example typical of Dr. Egilman’s devotion to his work, in 2013, when McGill University refused requests to allow opposing viewpoints to be heard at their conference about their controversial asbestos research, Dr. Egilman called it a “shameful cover-up” and held his own “counterconference” where the information could be presented. “David has never shied away from taking on special interests and speaking his mind on the important issues of our day. His attitude is captured in the name of his consulting firm—Never Again Consulting,” stated Arthur Frank, PhD, MD, Co-Chair of ADAO’s Science Advisory Board. “He also serves with distinction in our scientific community as the editor of one of the more important journals in our field.” “Statistics are people with the tears wiped away,” said Dr. Irving Selikoff for whom ADAO’s award was named. “Dr. Selikoff showed how good science alone was not enough to impact public health,” added Dr. Egilman. “Publicity as a component of advocacy is crucial to improving public health. As Virchow noted and Selikoff demonstrated ‘Medicine is a social science, and politics nothing but medicine at a larger scale.’” “We must develop organizations that push a humans-first agenda,” continued Egilman. We can hear the passion in his writing: “We must explain that production without regulation inevitably results in a polluted environment and injuries to workers and consumers. This is not because corporations are immoral or evil; it is because competitors will drive them to bankruptcy if they do otherwise. It costs more money to produce products that do not injure. Regulation is required to produce a level playing field that demands safe production processes and products. To win the struggle, the ‘we are our brother’s keeper’ ideological construct must become dominant.” “ADAO applauds and thanks Dr. David Egilman for being an unwavering voice for truth, justice, and science,” said Linda Reinstein, Co-Founder and President of ADAO. “Being ‘our brother’s keeper’ is something ADAO strives for every day. Dr. Egilman gives us an inspiring example of what that really means.” Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


Dr. Irving Selikoff Lifetime Achievement Award Dr. Ken Takahashi Dr. Ken Takahashi will be recognized with the Dr. Irving Selikoff Lifetime Achievement Award in honor of his tireless dedication to increasing awareness about asbestos to eliminate diseases and his unending support of the Asbestos Disease Awareness Organization. Ken Takahashi, MD, PhD, MPH is Professor and Chair of Environmental Epidemiology and IIES Director of the International Center, University of Occupational and Environmental Health, Japan. His research includes special interest on the global situation of asbestos-related diseases, and has been published in The Lancet, Bulletin of the World Health Organization, Environmental Health Perspectives, and other scholarly journals. He is one of the Secretariat group responsible for developing the "Toolkit for the Elimination of Asbestos-Related Diseases.” His powerful voice on behalf of asbestos victims is clear in his introduction to the Toolkit: “Today it is a sad reality that many countries, especially those which are rapidly developing, continue to use asbestos at alarming levels. The developing countries in Asia are at the forefront of this trait, so we intended the administrators, practitioners and researchers therein to be the primary beneficiaries. But our hope is that any party with concern on asbestos-related diseases (ARDs) can have something to benefit from this toolkit. … The most effective means to prevent ARDs is to stop using asbestos.” “It is with great pleasure that ADAO is able to recognize the work of this outstanding physician and researcher who has been a leading crusader for the elimination of asbestos worldwide. His important work supports scientifically with irrefutable facts why asbestos must be banned in order to curb the highly preventable pandemic of asbestos-related diseases worldwide,” said Dr. Richard Lemen. “I am personally honored to be given the privilege to present this year’s award to Dr. Ken Takahashi whom I respect greatly. With the work of researchers like Dr. Takahashi, our world will indeed become a safer place with at least one cause of avoidable suffering eliminated.” Dedicated to public health, Dr. Takahashi works tirelessly to eliminate asbestos-related diseases. “I deeply respect Dr. Selikoff, not only for his science, but also because he made every effort to raise awareness and impact regulation,” said Dr. Takahashi regarding the namesake of the award. “I am inspired by Dr. Selikoff because he is a man of science with humanity.” This description matches Dr. Takahashi as well. Dr. Takahashi stated that the most significant recent event in asbestos disease prevention is that “the UN specialized agencies recognized and declared the need to eliminate ARD and advanced that the use of asbestos be stopped worldwide. I have seriously subscribed to this notion as a public health researcher, and committed myself to contributing to this goal,” adding modestly, “no matter how insignificant my contribution will be.” At ADAO, with this award, we recognize that Dr. Takahashi’s contribution is very significant indeed. Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


Tribute of Inspiration Award Bill Ravanesi Bill Ravanesi, MA, MPH, will be recognized with the Tribute of Inspiration Award for his untiring efforts to protect workers’ rights and seek justice for asbestos sufferers and their families. Ravanesi is the photographer and one of the co-authors of the powerful exhibit and book, “Breath Taken: The Landscape and Biography of Asbestos.” Ravanesi’s specialty is in photographing working-class America. When his father, exposed to asbestos as a shipyard worker during World War II, died from mesothelioma, Ravanesi was driven to do something to protect others from this terrible and preventable disease. The book brings us face to face with the victims and inspires us all in the fight for a world free from asbestos. In one of the interviews, Joe Darabant talks about the asbestos dust at the plant where he worked being so thick he couldn’t see from one end of the building to another, adding, “I wish I would have some friends. Now, all my friends are in the cemetery.” It is impossible to see Ravanesi’s pictures, taken of dying former Johns-Manville employees and their families over a period of eight years, and not want to do something to stop asbestos disease. In addition to his powerful photography, Ravanesi has had a long career in the non-profit world, most recently as the Boston Regional Director of Health Care Without Harm (HCWH), an organization committed to ecologically sound, healthy practices in health care. In 2013 he received the Environmental Health Hero Award from CleanMed for his work on HCWH’s Green Building and Energy Program and in 2012 he received the EPA’s New England Region Environmental Merit Award for HCWH’s efforts to reduce the environmental impact of the health care industry. Ravanesi is also the Founder of the Center for Visual Arts in the Public Interest. "Bill Ravanesi's photographs in ‘Breath Taken: The Landscape and Biography of Asbestos’ constitute a moving portrait of the plight of the tens of thousands of victims of asbestos disease, as well as a powerful indictment of the criminal callousness of the asbestos industry,” said Paul Brodeur, co-author of “Breath Taken,” whose riveting articles on asbestos appeared in The New Yorker. “We are grateful to Bill for allowing us to use his photographs in our video ‘Asbestos Kills,’” said ADAO CoFounder and President Linda Reinstein. “He extended the reach and power of our asbestos awareness message and helped save lives. In the case of these photos, it is certainly true that a picture is worth a thousand words.” Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


Tribute of Unity Award National Association for the Defense of Asbestos Victims (ANDEVA) “No matter how powerful an industrial lobby is, the truth of science and voice of the victims will be louder, when listened to. We will continue campaigning for a worldwide asbestos ban and bring help and force to people around the world who want to achieve this fair goal,” stated the National Association for the Defense of Asbestos Victims (ANDEVA). Those words exemplify ADAO’s decision to honor them with the Tribute of Unity Award for their relentless efforts, both nationally and internationally, to protect workers’ occupational safety and health. ANDEVA was founded in 1996 by three associations which had spearheaded the anti-asbestos campaign in France. At that time, France was still a large user of asbestos and laws were too lenient. The industry’s lobbying tool, the Comité Permanent Amiante, was still very active in denial and promotion of false “scientific” information on asbestos. Among ANDEVA’s achievements are the 1996 French decrees concerning asbestos precautions at the workplace and in buildings, and a ban on asbestos use in France, soon followed by a European ban. In 2000, the official creation of a Fund for the Compensation of Asbestos Victims (FIVA) was a very important step to acknowledging the damages caused to victims and their families and providing fair and quick compensation. In 2006, ANDEVA won a landmark case at the French Supreme Court for administrative trials, forcing the French government to bring back an old aircraft carrier riddled with asbestos instead of having it dismantled by unprotected workers. In October 2012, ANDEVA organized the International Conference for Asbestos Victims, including a scientific conference and a demonstration in Paris streets calling for a "monde sans amiante," a world without asbestos. The conference was one of the first of its kind, attended by top scientists and activists from all around the world. The march gathered around six thousand people and was headed by symbolic international delegations. “It was a strong moment of solidarity and emotions,” ANDEVA stated. Today, with the presentation of this award, ADAO feels an equally strong moment of solidarity and emotions, especially our tremendous gratitude for all ANDEVA has done for asbestos victims around the world. Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


Alan Reinstein Award Janelle Bedel Janelle Cameron Bedel’s courage and perseverance throughout her illness earned her the nickname “Wonder Woman.” ADAO is proud to pay tribute to Janelle with the Alan Reinstein Award for her commitment to education, advocacy and support to countless patients and families impacted by asbestos-related diseases. Janelle was and remains an inspiration to our mesothelioma community and supported fellow Meso Warriors around the world. In spite of her debilitating illness, Janelle organized a Miles for Meso fundraiser run/walk in 2012 in her town of Rushville, Indiana. She was an active supporter of ADAO and had planned to participate in the 2014 conference until her tragic death from mesothelioma ten months ago. Janelle’s story was featured in the Rushville Republican and many times on the ADAO website as she shared stories, blogs, and videos, including “Janelle’s Mesothelioma Journey.” She produced her own videos to spread awareness about the harsh realities of her disease. In response to an online comment, Janelle wrote, “I hope this will show people we’re not statistics, we’re real people.” Janelle’s spirit shined through in her ADAO Share Your Story posting, ‘I Will Never Be the Same Again’: “I have come a long way, but I know I will never be the same again. … Some days, I could deal with the new me and other days, it was harder. I just try to continue to improve my life every day. … There have been a lot of hard days, but the ones in between are really great!” On June 18, 2013 ADAO had the great honor of traveling to Janelle’s hometown of Rushville, Indiana to present her with the Alan Reinstein Award. During the trip to Rushville, U.S. Senator Donnelly (IN), Rushville Mayor Mike Pavey and the rest of the City Council, staff from Congressman Luke Messer’s office and from the Rushville Republican each personally thanked Janelle for her incredible advocacy work. Janelle lost her courageous six-year battle with mesothelioma the next day. The Cameron family is attending the ADAO conference to accept the award in her memory. Our Wonder Woman will forever live in our hearts and work.

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


Alan Reinstein Award Heather Von St. James Heather Von St. James, a mesothelioma patient, will be recognized with the Alan Reinstein Award for her commitment to education, advocacy, and support to countless patients and families. “We are taking action and getting involved, on a local, national, and even global level,” said Heather, a longtime ADAO community member. “Social media is exploding with advocates for patients, and a willingness of people to help spread the word about mesothelioma and asbestos. Many victims are not sitting back quietly; we are out in the public eye, making our stories known, making the public aware that this could have been prevented.” LungLeavin Day is one of many examples of how Heather turns tragedy into triumph. When her daughter was only a few months old, Heather had a lung removed due to mesothelioma. Her fears were overwhelming. Would she live to see her child grow up? On the first anniversary of her surgery, she and her husband, Cameron, started LungLeavin Day, a day to let go of our fears and resolve to live life to the fullest. Every year they host this day in their home, where people write their fears on a plate and throw their plates in the fire. As attendance has grown, they have added a fundraising component, raising money for ADAO and other nonprofit organizations. Heather calls it “a day to celebrate life.” She also celebrates that her daughter is now eight years old, adding, “She is my heart, my everything. I am so proud to be her mom.” Heather has been a powerful presenter at past ADAO conferences. She is a strong advocate for the International Mesothelioma Program and blogs regularly for The Huffington Post. “ADAO gave me my voice,” wrote Heather. “It gave me the courage to stand up and share my story, the courage to tell people that there is HOPE and that a meso diagnosis does not mean a death sentence. I'm very thankful that I got involved all those years ago, and will continue to be for many more.” ADAO looks forward to continuing our close relationship with Heather for many years to come.

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


Alan Reinstein Award Lou Williams “Louise (Lou) Williams lives with mesothelioma,” wrote Rod Smith, Director of the Bernie Banton Foundation. “Lou lost her father in 1985 at age 54 to pleural mesothelioma. Since then she has been passionate and dedicated in raising asbestos awareness, advocacy and support, both in Australia and globally. In 2001 she was diagnosed with peritoneal mesothelioma and bravely fought that with extensive surgery and chemotherapy. Unfortunately, in 2009 she was then diagnosed with pleural mesothelioma, which required major surgery and extensive chemotherapy. Lou is a very positive lady and her strengths shine through with her giving of hope, love and support to victims and their caregivers.” Lou’s personal wish for 2014 is “to continue to stay healthy, enjoy my life and also to have a global ban on asbestos!” Lou has served on boards of asbestos organizations since 2003 and is the Information and Awareness Officer with the Bernie Banton Foundation. She appreciates the opportunity through ADAO to help raise awareness, advocacy and support on a global scale, 24 hours a day. Her courage and perseverance throughout her illness are an inspiration to many, and her powerful story, “I Will Not Die in Vain,” is featured on the ADAO website. “Sending a beautiful rainbow of love, strength and hope to everyone,” she said in a Facebook posting. The ADAO community is deeply moved by her dedication to supporting fellow Meso Warriors. “Every day I live for the moment, as that is all we all have!” Lou wrote. “I believe I have a purpose in life and that is to raise asbestos awareness and if by doing so it saves even one life from this terrible cancer then I will be pleased and will not die in vain!” Lou’s proudest moments are “being a mum and giving birth to two beautiful daughters.” She is very proud of her daughters today as they have become mums themselves. Lou is an inspirational example of how our online community supports each other internationally. We are honored to present her with the Alan Reinstein Award recognizing her commitment to education, advocacy and support to countless patients and families around the world.

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


Special Recognition: The Valor Award Michael Bradley On February 1, 2014, Michael Bradley was awarded the 2014 Special Recognition of Valor Award for his unrelenting bravery and courage during his mesothelioma battle is a true mark of valor. At the age of only 29, Michael has made an extraordinary commitment to finding a cure for asbestos diseases and to banning asbestos. He is an inspiration to mesothelioma warriors and their families in the US and around the world. When Michael heard the mesothelioma diagnosis two years ago, he began sharing his story and never looked back. He set his course on change and I have seen his remarkable accomplishments. With Sandy and David by his side, I presented Michael his award by phone. Michael shared words of wisdom for the Mesothelioma Warriors and a message to President Obama. Dr. Richard Lemen, retired Assistant Surgeon General and ADAO Science Advisory Board co-chairman, wrote the following message: “Michael, I want to tell personally how much opening up your life experiences relating to asbestos and mesothelioma means to the multitudes of asbestos-related disease victims and their families. Your life story will comfort those destined to follow in your path because of the indiscriminate use of asbestos. Since we have no cure for your disease nor have we eliminated the use of asbestos, the sharing of your experiences for other asbestos-related disease victims constitutes some of the best medicine they can receive because they know they are not alone. It takes a brave and courageous man to open up his life and to share as you have. We thank you and we will share your story with the dignity you have displayed in sharing with us what you face during this challenge. I salute you and send you best wishes from all of us on the Asbestos Disease Awareness Organization (ADAO) Science Advisory Board who are working to eliminate the suffering and the devastation asbestos has brought our World. Your life, your love, your courage moves us much closer to our goal of preventing others from suffering as you are. Michael, thank you for being who you are and for showing all of us how life’s most difficult challenges can be faced with courage and dignity. Your experiences will make a difference. With gratitude and love, Richard A. Lemen, Ph. D., MSPH, Assistant Surgeon General of the United States (Ret.)� Our entire ADAO community applauds Michael and his tireless efforts to ban asbestos, find a cure, and offer support to others.

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


2013 ADAO Summary of Accomplishments The Asbestos Disease Awareness Organization (ADAO) was founded by asbestos victims and their families in 2004. ADAO is the largest independent organization dedicated to preventing asbestos-related diseases through education, advocacy, and community support. 2013 Education Initiatives: In an effort to educate the public about the dangers of asbestos exposure, ADAO: • Distributed monthly eNewsletters with up-to-date asbestos-related events and news to over 3,500 contacts • Hosted ADAO’s 3-day 9th Annual International Asbestos Awareness Conferencewhich brought together more than 125 world-renowned patients, physicians, researchers, educators, and public health advocates to discuss updates on the prevention, detection, treatment of asbestos-related disease and global advocacy for an asbestos ban • Continually updated ADAO’s website highlighting asbestos-related news and events and housing extensive educational resources, including an Asbestos Video Library of conference videos and educational presentations • Presented at numerous international conferences and events, including: o Yale University’s Global Health & Innovation Conference in New Haven, CT (April 2013) o “Asbestos: USA Toxic Trade” Press Conference in Washington, D.C. (April 2013) o “Asbestos: No Longer the Magic Mineral,” Flintridge Sacred Heart Academy in Los Angeles, CA (April 2013) o Community of Williamsburg, Brooklyn for Safe Asbestos Abatement at Domino Sugar Refinery (April 2013) o 3rd International Symposium on Lung-Sparing Therapies for Malignant Pleural Mesothelioma, Santa Monica, CA (May 2013) 2013 Advocacy Initiatives: In order to advocate for an international ban on asbestos use and the mining and exportation of this known carcinogen, ADAO: • Created and promoted the International Petition to Ban Asbestos and Save Lives which calls for an end to asbestos use. The petition, with over 2,500 supporter signatures, was delivered to the U.S. Congress in June 2013. • Supported the U.S. Senate’s passage of the Ninth Annual Resolution which designated April 1-7, 2013 as “National Asbestos Awareness Week” • Partnered with various national and international organizations to speak out against asbestos use and promote public health • Served as a resource to various news publications, including the Huffington Post and published a Letter to the Editor in The Wall Street Journal (May 2013) • Requently published blogs to expose international instances of occupational safety and workers’ health violations and spark opposition to the continued mining, exportation, and use of asbestos • Hosted a U.S. Senate staff briefing (June 2013) • Testified at the U.S. Senate EPW Committee hearing, “Strengthening Public Health Protections by Addressing Toxic Chemical Threats” (July 2013) • Testified at the U.S. House hearing, “Regulation of Existing Chemicals and the Role of Pre-Emption under Sections 6 and 18 of the Toxic Substances Control Act” (September 2013) • Co-sponsored a U.S. House of Representatives staff FACT Act Briefing (November 2013) 2013 Community Initiatives: In an effort to provide a community of support for those affected by asbestos, ADAO: • Coordinated Global Asbestos Awareness Week to raise public awareness about the prevalence of asbestos-related diseases and the dangers of asbestos exposure • Published frequent “Share Your Story” blogs through our website and social media platforms. Published collection in the “Shared Stories: How Asbestos Changed Our Lives” book. Shared by victims and their families, these stories honor individuals whose lives have been devastated by asbestos-related disease. • Hosted several virtual candlelight vigils throughout the year via ADAO’s “Light a Candle” website. These vigils provide an opportunity for individuals to honor loved ones who have lost or are currently fighting a courageous battle with asbestos-related disease. • Delivered letters from U.S. Senator Donnelly (IN) and Mayor Mike Pavey to Mesothelioma Warrior, Janelle, in Rushville, IN • Utilized ADAO’s Facebook Page, Facebook Group pages, and Twitter presence to provide an interactive medium for those seeking a space to share, vent, or obtain information Asbestos Disease Awareness Organization is a registered 501(c)(3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


2014 Asbestos Disease Awareness Organization Conference Awards & Recognition Dinner Saturday, April 5 • 6:30 pm - 9:00 pm

The evening will include a performance by Jordan Zevon, tributes to several tireless advocates for asbestos victims, and recognition of our generous conference sponsors.


ADAO Leadership and Volunteer Recognition Science Advisory Board Dr. Arthur Frank, Co-Chair Dr. Richard Lemen, Co-Chair Dr. Brad Black Dr. Barry Castleman Dr. Raja Flores Dr. Michael Harbut Dr. Hedy Kindler Dr. Christine Oliver Ann Samuelson

Herman Hamilton

Barbi McQueen, ADAO Celebrity Co-Chair

Jill Cagle

Cameron Von St. James

Jordan Zevon, ADAO National Spokesperson & Celebrity Co-Chair

Doug Larkin, Co-Founder

Kim Cecchini

Dr. Celeste Monforton

Laurie Rice

Dr. Freddi Segal – Gidan

Marilyn Amento

Ellen Costa

Michelle Zygielbaum

Ellen Patton

Paul Zygielbaum

Ellen Tunkelrott

Suzanne Dupree

Emily Reinstein

Tony Rich

Heather Von St. James

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


2014 ADAO Silver Sponsor


“Keep Me  In  Your  Heart”  

Warren Zevon   1947  -­‐  2003  

Shadows are  fallin'  and  I'm  runnin'  out  of  breath   Keep  me  in  your  heart  for  a  while   If  I  leave  you  it  doesn't  mean  I  love  you  any  less   Keep  me  in  your  heart  for  a  while     When  you  get  up  in  the  mornin'   and  you  see  that  crazy  sun   Keep  me  in  your  heart  for  a  while   There's  a  train  leavin'  nightly  called     "When  All  is  Said  and  Done"   Keep  me  in  your  heart  for  a  while     Sha-­‐lalala-­‐lala-­‐li-­‐lalala-­‐lo   Keep  me  in  your  heart  for  a  while   Sha-­‐lalala-­‐lala-­‐li-­‐lalala-­‐lo   Keep  me  in  your  heart  for  a  while     Sometimes  when  you're  doin'   simple  things  around  the  house   Maybe  you'll  think  of  me  and  smile    

You know  I'm  tied  to  you  like  the  buttons  on  your  blouse   Keep  me  in  your  heart  for  a  while       Hold  me  in  your  thoughts   Take  me  to  your  dreams   Touch  me  as  I  fall  into  view   When  the  winter  comes   Keep  the  fires  lit   And  I  will  be  right  next  to  you     Engine  driver's  headed  north  up  to  Pleasant  Stream   Keep  me  in  your  heart  for  a  while   These  wheels  keep  turnin'   but  they're  runnin'  out  of  steam   Keep  me  in  your  heart  for  a  while     Sha-­‐lalala-­‐lala-­‐li-­‐lalala-­‐lo   Keep  me  in  your  heart  for  a  while   Sha-­‐lalala-­‐lala-­‐li-­‐lalala-­‐lo   Keep  me  in  your  heart  for  a  while   Keep  me  in  your  heart  for  a  while  

Lyrics reprinted with permission. © 2003 Zevon Music (BMI) / Googolplex Music (BMI)


The Asbestos Disease Awareness Organization thanks

Barbara Minty McQueen for her commitment to ADAO, support on the Hill, and generous donation of autographed copies of her beautiful photographic memoir Steve McQueen:

The Last Mile Revisited.

Visit www.barbaramintymcqueen.com to view photos of Barbara with her late husband Steve McQueen and order copies of her book.


Steve McQueen

Photographer Dave Friedman

1930-1980

A letter to S Steve teve I think about y much unfinishe ou every day. We still have d h Meso stole y business, even after all th ave so ou es many others. r life, our life together a e years. nd A world will cha DAO and an educated, co too nge this very n soon......Love cerned , Barbi


RON CYRUS

“ My dad was everything to me and most of all he was my best friend. His character, trustworthiness and dedication made him a wonderful role model. If only money could bring better health, he would be with us today. I support ADAO and their efforts to ban asbestos. We all must work together in this fight. ADAO has my continued support in making everyone aware of this deadly disease.” — Billy Ray Cyrus


s a l u t e s f r i e n d

o u r

a n d

b e l o v e d

c o l l e a g u e

Army Archerd o n

r e c e i v i n g

the Warren Zevon “Keep me in Your Heart � Memorial Tribute and the ADAO for their continued e f f ort s i n r a i s i n g p u b l ic awa r e n e s s on the dangers of asbestos e xposure

IN MEMORIAM


In Loving Memory of Alan Reinstein 1939 – 2006

Unforgettable Husband and Father Sweetly, we remember how you lived your life so deeply and without regrets. You loved us unconditionally. The broken shards of the past eight years soften amongst 25 years of bliss and have become a cherished mosaic of memories. Our love for you is forever etched across our hearts, and we feel your love.

Love,

Linda and Emily


Bill Shields 1943-2004

Husband, Father, Friend

You are never forgotten and you were an inspiration in founding ADAO – so that all victims may have a voice. Your spirit still soars on the wings of a seagull, and our memories will always keep you alive in our hearts, minds and souls forever. From your loving family and friends


Gordon Bankhead 1943 – 2011

“Have I Told You Lately That I Love You” Remembering Seven Seventeen Love, Emily


A life ended way too soon. Husband, Father, Lover and Friend Our lives will never be the same. I will love you forever. ~ Lisa ~


Bob Rahe Bob is best remembered by those that knew him for his sense of humor, love for his son, and passion for sports - most especially horseracing. Bob had an unwavering strength and determination that was largely responsible for allowing him to maneuver his nearly 11 year battle with Mesothelioma.

Bob's family and friends are proud to sponsor this event in his memory. We look forward to continuing to support the important work of the Asbestos Disease Awareness Organization.

The Rahe Family


Stan “Swede” Grimberg Union Plumber Local 290/Oregon Mesothelioma Warrior

April 18, 1929 - June 6, 1982

“You are on my shoulder, encouraging me always to move forward, look ahead, work hard, and make the best of what I’m given. I will tell your story Dad, so that other tradesmen and women will not suffer, and their sons and daughters will not lose their parents to deadly asbestos. By volunteering with ADAO I honor you, your fighting spirit, and the injustice our family has endured.” Love you, always and forever your daughter,

n n A


Janelle Bedel   1976-­‐2013  

"I'm super proud of her…She's every bit of what everybody says about her -- Wonder Woman."   Andrew  Bedel  

Wonder Woman once said, in a television episode that seems made for reality, “Please take my hand. I give it to you as a gesture of friendship and love, and of faith freely given. I give you my hand and welcome you into my dream.”


In loving memory of

Debbie Brewer Dedicated Mum and Mesothelioma Warrior 1959-2013

“Together we will fight, change is possible” Debbie Brewer was recognised worldwide for her loving support of those affected by Mesothelioma & other asbestos-related diseases, despite being diagnosed herself with Mesothelioma in 2006. “I get so much from helping other people, it gives me something to focus on & fight for” she told us. In 2012, Debbie proudly received the Alan Reinstein Award from ADAO in recognition of her services to international advocacy, campaigning, support and education. Her reputation for challenging convention is legendary. Debbie leaves three beloved children, Richard, Siobhan & Kieran, together with a large, extended family of worldwide Mesothelioma warriors.


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In Loving Memory

JAN EGERTON 1960 - 2014

A true Mesothelioma Warrior who inspired, supported others and continued to raise awareness while fighting her own battle. Jan is sadly missed by her soul mate and much loved husband Gary. She was an adoring Mummy to Lexi and Bear, a beloved Sister and Auntie and a wonderful friend to many others around the world. An angel who is loved so much - spread your wings – and fly now that you are without pain.


Remembering Kenny Beer 1950 - 2011

Not a day goes by that we don’t think of you You brought happiness to every life you touched. We shared our love of family & friends…….our passion for golf, fine wine and our great joy in spending time together…… we had so much more life to live. Our family’s center…… forever loved & missed Love always Marli & Stewart, The Beer & Stewart families Together we can make a difference by supporting the Asbestos Awareness Disease Organization….. thanks for all you do to raise awareness and your dedication to the fight to ban asbestos use worldwide.


In honor  of  his  continuing  HEROIC  battle  against  mesothelioma...  

David “SuperDad”  Dioguardi  

                                 

Our SuperDad’s  experience  inspired  us  to  start…  

Mesothelioma Heroes  Foundation   …to  help  the  HEROES  affected  by  mesothelioma  by  raising  public  awareness,   providing  educational  information  and  support  to  others,  and  promoting  funding  for   the  HEROES  that  are  developing  treatments  and  searching  for  a  cure.               PLEASE  HOLD  THE  DATE  for  our  first  awareness  and  fundraising  event     in  support  of  University  of  Chicago  Medicine’s  Mesothelioma  Program.   www.mesoheroes.org  

 

               

September 20,  2014  

Thank  you  to  Asbestos  Disease  Awareness  Organization  for  your  efforts  on  behalf  of  all   Mesothelioma  HEROES,  and  congratulations  to  all  of  the  ADAO  Honorees.  

You are  all  Superheroes!!  


John James Mikulic May 4, 1946 – September 22, 2013 Our LOVE was one in a million and Loving you has spoiled me forever. I miss your touch, holding hands, feeling your arms around me and the wonderful kiss goodnight! I MISS EVERYTHING ABOUT YOU! I never believed that You and I would get a second chance at Love. Everything about you and me make me realize that what we had was a Once-in-a-Lifetime ~ Forever Connection. I was so lucky to have you back in my life and I will forever miss you. This HORRIBLE DISEASE STOLE OUR FUTURE AND IT STOLED YOUR LIFE.

1971

2010

JOHN ~~ You were the LOVE of my LIFE You are always in my thoughts and prayers and I know you are with me always. My heart aches for you everyday. You were a loving, kind, and wonderful person and you are missed by so many! I look forward to the day we are together again!

April, 2013

I LOVE YOU and I ALWAYS WILL! Your loving wife, Michele


IN LOVING MEMORY JALAL (JJ) SEGMEN

MESOTHELIOMA WARRIOR 06/21/1955 – 08/31/2007

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ð Your gentle face and patient smile With sadness we recall, You had a kindly word for each And died beloved by all. The voice is mute and stilled the heart That loved us well and true, Ah, bitter was the trial to part From one so good as you. You are not forgotten loved one Nor will you ever be, As long as life and memory last We will remember thee. We miss you now, our hearts are sore, As time goes by we miss you more. Your loving smile, your gentle face, No one can fill your empty place.


In honor of the courageous battle of…

Jimmy O’Driscoll

Mesothelioma has taken so much from us. You fight your daily battle with so much dignity and courage. The demon within can never take that away or my everlasting love for you. -

Esther

Courage does not always roar. Sometimes courage is the quiet voice at the end of the day saying, “I will try again tomorrow.” - Mary Ann Radmacher


ADAO pays  tribute  to  the  bravery  and  strength  of…  

Michael Bradley   “Not  only  am  I  fighting  asbestos  related  cancer,  but  I  am  putting  myself   on  the  frontline  in  the  battle  against  the  mining  and  use  of  asbestos.”  

-­‐ Michael        

“Michael is  one  of  the  strongest  bravest   men  I  know,  He  even  through  his  illness  has   fought  a  fight  against  what  has  caused  this,   he  fights  for  not  only  himself  but  for  others   that  are  in  his  position  and  for  others  that   we  can  save  in  the  future.”     Misty  Bradley  

(Michael’s Sister)  

“Throughout the  past  two  years  I've   watched  my  wonderful  son  dwindle  with   mesothelioma.      To  know  this  was   preventable  and  to  know  all  Michael  did  was   go  to  work  with  his  Dad  and  it  is  costing  him   his  life,  it’s  unimaginable.”     Sandra  Neuenschwander   (Michael’s  mother)  


No words on paper could ever describe my hero, a man of great  gentleness and passion. His loss is overwhelming and like far too  many others, it was unnecessary and avoidable. We had an  adventure all too short which left my family behind, but his legacy  was to unite the Mesothelioma groups and to Ban Asbestos.  It is with  great pride and honor we continue to do so, and with each tragedy  we remember our goal to fight to educate and end this useless  nightmare, and to create a world where no one has to suffer like our  families have.    The John McNamara Foundation is proud to work with ADAO and  applauds its tireless efforts to make this world a better place. One life  is too many.    Make memories that take your breath away.      TC McNamara 


IN LOVING MEMORY

Todd Hall Lexington, Kentucky 1967 - 2006

Todd was a son, brother, uncle, family member, loyal friend and respected business owner. He had an outgoing and engaging personality, befriending people from all walks of life. He led a healthy lifestyle, but his life was cut short by mesothelioma. Todd’s asbestos exposure was nonoccupational. Though thousands lose their lives annually to mesothelioma, asbestos still isn’t banned in the US! Thanks to ADAO for its constant efforts to ban asbestos. Todd’s Family


Congratulations!! From Jill “^j^illypooo” Vaughn To ADAO, Linda Reinstein, Doug Larkin and all volunteers who make this conference a success. As a Meso survivor, a phone volunteer at MDAnderson Network and Bloc Cancer Center for over 20 years, I have had the wonderful opportunity to meet many Meso families. The Mesothelioma Listserv on ACOR’s website has also been a great source of information, support and meeting of lasting relationships from sharing in the War on Meso. My husband Bud and I would like to honor the Caregivers and Meso Warriors who are fighting. And, to the memory of those Meso friends that have gone on before us …

"Another songbird falls silent on Earth, And in the heavens another star Blinks into existence In the evening skies To help light the way for the rest of us."

http://bit.ly/AztM5d


Robbie Cagle   Meso  Warrior   July  22,  1965  –  September  11,  2011  

There are so many things that I would like to say about this wonderful man but there is just not enough room. He was my Soul Mate: a very dedicated and loving husband, friend, father, son, brother and most recently a grandfather. He absolutely loved to fish, ride his Harley and play golf. Rob could tell a story like no one else I know. He was such a people person and never met a stranger. He had a smile and one of those personalities that just lit up a room. Loved lending a helping hand. In fact, the night before he was placed in hospice care, he was DJing for a benefit. The courage that he displayed through 6 years of mesothelioma and too many chemo treatments to count, was such an awesome example for others and a true testament to his life. Encouraging others till the end he affected and infected so many people’s lives. Rob was an advocate for fighting this disease and the total ban of asbestos. This disease took his life but it never ever took his spirit and passion for living. He never gave up. I believe he would want to say to those battling this nasty disease:

Don’t give up!! Live Every Day!! Love with your whole heart!! Keep fighting for a ban and a cure!! and as only he could say...

“It’s All Good!!!" Rob, You will be missed more than words can describe. See you in heaven. Love, Jill


Our Message of Hope. If the world unites in 2014, we can offer hope that one day we will have a cure for Mesothelioma. First we must agree to stop production from all the Asbestos Mines and monitor to stop all Imports of Merchandise containing Asbestos. Then we must remove all existing trace of Asbestos in our homes and workplaces and in our Schools. This will start to protect the future generations. Mavis Nye


Thank you for giving me my voice.

The Asbestos Disease Awareness Organization has been important in our lives as we work together to prevent exposure and fund research for a cure.

Congratulations to all of the 2014 Conference Honorees on their well-deserved awards!

Heather Von St James: Heather’s Hope Blog http://bit.ly/1nwbVUv


In Loving Memory of

Stephen M. Levin, MD Stephen M. Levin Foundation stephenmlevin.com To honor Steve Levin, and to help further the work about which he cared so deeply, a scholarship for medical residents specializing in occupational health has been created in his name. To donate to the memorial fund, checks may be made out to the “Stephen M. Levin Foundation� and mailed to: Stephen M. Levin Foundation 459 South Broadway / Upper Grandview, NY 10960


In honor of the ADAO’s 10 years of leadership to raise awareness about asbestos-related diseases and its commitment to a public health approach to prevent them,

& In appreciation for ADAO’s support of the American Public Health Association’s 2009 policy statement calling for the Elimination of Asbestos.

In solidarity,

American Public Health Association


EWG’s ground-breaking 2004 report “Asbestos: Think Again” focused on the thousands of innocent people who have suffered, and in too many cases died, from exposure to asbestos. EWG Action Fund dedicated this project to the life and work of the late Rep. Bruce Vento, D-Minn., who died of mesothelioma on October 10, 2000. Congressman Vento was an eloquent and energetic champion of countless environmental causes from pollution control to wilderness protection and left his stamp on many of America’s most important laws.

About the photo: Joe Darabant worked with asbestos construction materials at the Johns-Manville plant in Manville, N.J., for more than 30 years. He retired in 1974 at the age of 50 when the company health center told him he had “chronic bronchitis” and a “weak heart.” Later, independent physicians diagnosed him with asbestosis. He died on April 26, 1990 at the age of 66. HIs photograph was featured on the cover of EWG’s 2004 report, Asbestos — Think Again. http://www.ewg.org/asbestos/index.php


The National Council for Occupational Safety and Health commends the Asbestos Disease Awareness Organization for their outstanding work in protecting workers from exposure to asbestos on the job. THANK YOU FOR ALL YOU DO!

STAND UP FOR WORKER HEALTH! To learn about the COSH Network visit: www.coshnetwork.org

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Thanks to ANDEVA

The Asbestos Disease Awareness Organization sincerely thanks the French National Association of Asbestos Victims (ANDEVA) for inviting us to participate in their landmark “International Day for Asbestos Victims” conference and “A World without Asbestos” demonstration in Paris


The Asbestos Disease Awareness Organization sincerely thanks the

for providing real-time reporting at the 10th Annual International Asbestos Awareness Conference “Where Knowledge and Action Unite� in Washington, D.C. www.magnals.com


In Appreciation  for  ADAO’s   Shared  Commitment  to  Protecting  the   Safety  of  Workers  

In solidarity,   New  York  Committee  for  Occupational  Safety  and  Health    

New York  City:     NYCOSH   61  Broadway  –  Suite  1710   New  York,  NY    10006     Long  Island:     NYCOSH   150  Motor  Parkway  –  Suite  306   Hauppauge,  NY    11788    

www.nycosh.org  


Demonstrating Auditing and Regulatory Requirements for

INDEPENDENT ASBESTOS TRAINING PROVIDERS In support of ADAO’s initiative of the Global Asbestos Awareness Week on April 1–7, 2014 Independent Asbestos Training Providers (IATP) www.iatp.org.uk


Our aim: an asbestos-free Australia The Asbestos  Safety  and  Eradication  agency  was  established  by  the  Australian  government  on  1  July  2013  to   provide  a  national  focus  on  asbestos  issues,  which  go  beyond  workplace  safety  to  encompass  environmental  and   public  health  issues.   The  primary  focus  of  the  agency  is  to  implement  the  National  Strategic  Plan  on  Asbestos  Awareness  and   Management  2013-­‐2018  which  was  developed  to  prevent  exposure  to  asbestos  fibres  in  order  to  eliminate   asbestos  related  disease  in  Australia.  It  will  achieve  this  by:   •

increasing public  awareness  of  the  dangers  posed  by  working  with  or  being  exposed  to  asbestos  

moving towards  developing  a  prioritised  removal  program  across  Australia  

developing nationally  consistent  better  practice  in  asbestos  handling  and  management  

coordinating national  research  to  minimise  the  risk  of  exposure  to  asbestos  for  the  Australian  community  

playing a  leadership  role  in  a  global  campaign  for  a  worldwide  asbestos  ban.  

Australia was  one  of  the  highest  per  capita  users  of  asbestos  containing  materials  in  the  world  during  the  20th   century.  An  estimated  one  third  of  homes  built  between  1945  and  the  late  1980s  would  have  contained  asbestos  in   their  kitchens,  bathrooms,  external  walls  and  roofs.   Australia  banned  all  use  of  chrysotile  asbestos  as  of  31  December  2003  but  unfortunately  the  community  will  feel   the  effect  of  this  deadly  substance  for  many  decades  to  come.  Over  the  next  20  years,  an  estimated  30,000  to   40,000  Australians  are  expected  to  be  diagnosed  with  an  asbestos-­‐related  disease,  not  peaking  until  after  the  year   2020.     On  behalf  of  the  Asbestos  Safety  and  Eradication  Council,  I  congratulate  Lou  Williams  for  being  awarded  the  Alan   Reinstein  Award  for  her  commitment  to  education,  advocacy,  and  support  to  countless  patients  and  families.   ASEA  was  honoured  to  sponsor  Lou  in  her  journey  to  the  US  to  receive  this  award.   I  also  congratulate  the  ADAO  for  organising  another  great  international  asbestos  awareness  conference  and  we   look  forward  to  working  with  you  to  eradicate  this  insidious  substance  from  our  communities.  

Peter Tighe CEO, Asbestos Safety and Eradication Agency

GPO Box 9880, Sydney NSW 2001 Australia

enquiries@asbestossafety.gov.au

www.asbestossafety.gov.au


Asbestos Diseases Foundation of Australia is proud to be part of the 10th Anniversary Asbestos Disease Awareness Organization Conference

Asbestos Diseases Foundation of Australia (ADFA) is a not-for profit organisation working to provide support to people living with asbestos related diseases, family members, carers and friends. ADFA is a community based group founded by Trade Unions, victims, families of victims, and concerned citizens to meet the needs of people affected by asbestos related disease and has a long history of being engaged in advocacy work within the Australian community. www.adfa.org.au


CONGRATULATES

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On the running of the:

10 Annual International ADAO Asbestos Awareness Conference In unity, two organizations borne from the grief of losing loved ones as a result of ASBESTOS disease

Support - Awareness - Advocacy “The fight will continue until the war is won”

Bernie Banton Foundation Contact: Karen Banton CEO Email: info@berniebanton.com.au Mob: +61 412 830 485 Web: www.berniebanton.com.au Postal: PO Box 98 Rod Smith Tyabb Victoria 3913 Operations Manager Australia Mob: +61 418 319 757

Asbestos Disease… Takes your breath a way!™


The Marriott is pleased to congratulate‌

The Asbestos Disease Awareness Organization on their 10th Annual Asbestos Awareness Conference in Washington, D.C. We are proud to support the Asbestos Disease Awareness Organization's efforts since 2005 and look forward to our continued partnership!


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Blue Heron Films and ZeelTV would like to congratulate ADAO on ten years of valiantly fighting for the rights of asbestos victims. By your continuing to educate the public about still-present dangers and offering comfort, information, and resources for patients and families of the newly diagnosed makes ADAO an invaluable community of support. By offering a conference that gives leading physicians and researchers a place to connect with each other, policy and consumer advocates, and victim’s families you become the holistic resource for the worldwide asbestos family. Congratulations to Linda Reinstein, Emily Reinstein, Doug Larkin, and Jordan Zevon for keeping the flame burning in the name of those you love and have lost. We are honored to participate in your journey by filming the conferences and producing your video messages. We are inspired and remain in awe of your determination to rid the world of this preventable disease. Never believe that a few caring people can't change the world. For, indeed, that's all who ever have. (Margaret Mead)


ENVIRONMENTAL INFORMATION ASSOCIATION The Association’s multi-disciplinary membership will collect, generate and disseminate information concerning environmental health hazards to occupants of buildings, industrial sites and other facility operations.

EIA Salutes the work of the ADAO And we wish you the best of luck in your 2014 endeavors. We appreciate the partnership between our organizations, and look forward to working together to bring an end to the needless dangers of asbestos exposure.

The Environmental Information Association, with its beginnings as the National Asbestos Council, has spent over 30 years at the forefront in providing the environmental industry with the information needed to remain knowledgeable, responsible, and competitive in the environmental health and safety industry.

EIA is holding its 31st Annual Conference, March 23-26, 2014 at the Hyatt Regency San Antonio Riverwalk. The EIA National Conference is the best source of technical information for Environmental Health and Safety Professionals, in the areas of Asbestos, Lead, IAQ, Mold and EMS/ESA. ENVIRONMENTAL INFORMATION ASSOCIATION 6935 Wisconsin Avenue, Suite 306 Chevy Chase, MD 20815 www.eia-usa.org Phone: 888-343-4342 Fax: 301-961-3094 Email: info@eia-usa.org


If you or a loved one have been affected by asbestos and asbestos-related diseases, please share your story. These stories provide hope and comfort to those in similar situations and can spread awareness of asbestos in order to save lives.Â


APRIL 1-7


Asbestos: One Word. One World. One Week. Mark your calendar now to check in with ADAO every day on April 1-7, 2014 for Global Asbestos Awareness Week. Join together with us to spread the word about this deadly carcinogen. Each day will focus on a different subject and Mesothelioma Warrior story for you to read and share. Sharing is powerful. Knowing how to prevent asbestos exposure saves lives! April 1: Linda Reinstein, "Asbestos: The Toxic Trade Continues." ADAO Co-Founder shares the latest facts and stats about asbestos mining, manufacturing, and commerce. Alan Reinstein’s Story, “I’ll Do Anything to Fight Mesothelioma to Have More Time with My Family, Anything”

April 2: Dr. Richard Lemen, “Asbestos: What is It?” ADAO Scientific Advisory Board CoChair explains where asbestos is found and who might be in danger of being exposed. Michael’s Story, “Asbestos Has Changed My Life”

April 3: Dr. Arthur Frank, “Why is Asbestos Bad for My Health?” ADAO Scientific Advisory Board Co-Chair shares information about what you should do if you are diagnosed with an asbestos-related disease. Mavis’ Story, “Social Media and Mesothelioma”

April 4: Dr. Ken Takahashi, "Toolkit for the Elimination of Asbestos-Related Diseases (ARDs)." Esteemed scientist and Acting Director of the WHO Collaborating Centre for Occupational Health in Japan shares his informational toolkit for tackling ARDs. Julie’s Story, “Asbestos Not Only Kills People – It Destroys Lives”

April 5: Keeping Workers Safe. The U.S. Occupational Safety and Health Administration (OSHA) listens and takes action with their NEW Asbestos Fact Sheet. Janelle’s Story, “I Will Never Be the Same Again”

April 6: A Statement from the U.S. Surgeon General and Senate Resolution 336. Read and share the full statement on asbestos and find out about recent updates. Louise’s Story, “I Will Not Die in Vain”

April 7: Mesothelioma Warriors Speak Out. "Communication, Collaboration, and Action" is the theme of the closing day of Global Asbestos Awareness Week, featuring Mesothelioma Warrior blogs, stories, videos and songs. ADAO will end the Week with an Asbestos Victims’ Candlelight Vigil to honor and remember those sickened by preventable asbestoscaused diseases. Heather’s Story, “The Value of My Life in Dollars and Tears”


Asbestos Awareness Week Candlelight Vigil Light a candle in Unity, Hope & Remembrance

April 7, 2014

Please join ADAO for our annual worldwide candlelight vigil in honor and memory of those who have died from asbestos exposure, to support the families and friends who are grieving, and to find strength from those whose mission is to have a world free of asbestos.

ADAO will light five candles to Remind us of love Give us courage

Heal our grief Honor our memories

Strengthen our pledge to continue


GBAN GLOBALBAN ASBESTOSNETW ORK COMMUNI CATI ON. COLLABORATI ON. ACTI ON s oci almedi acommuni t y

The Gl obalBan As bes t os Net wor k( GBAN) Soci alMedi a Communi t yi s a nonpr oďŹ t an i ndependenti ni t i at i ve es t abl i s hed t o pr omot e and f aci l i t at e col l abor at i on, communi cat i on, and act i on t o achi eve a gl obalas bes t osban. GBAN i saones t oppor t alt hatbr i ngst oget her i nt er act i ves oci almedi aout l et st o pr omot ean end t o as bes t osmi ni ng and us e,t her ebypr event i ng cont i nued expos ur et o t hi s known humancar ci nogen.

www. gban. net www. f acebook. com/gbanAs bes t os


e s a e s i D s o t s e y c b s a A c r o o v F d d A , e t i n n o i t U a c “ u d E t r , � o s s p e p n u e S r y a t i n Aw u m m o &C

The Asbestos Disease Awareness Organization 1525 Aviation Boulevard, Suite 318, Redondo Beach, California, 90278 (310) 251-7477 Registered 501(c) (3) nonprofit organization

www.AsbestosDiseaseAwareness.org


cooking is love Keeping Families Together

– A Recipe for Life – Start with a loaf of HOPE Add a dash of RESILIENCE Season with a pinch of ENDURANCE To live with the challenges of an asbestos-related disease Sprinkle liberally with DETERMINATION And a handful of SPIRIT Cover with COURAGE And always serve on a bed of FAITH Nestled in a platter of LOVE * Poem courtesy of the Center for Asbestos Related Disease

To receive a copy of our new cookbook, please contact info@asbestosdiseaseawareness.org


Profile for Linda Reinstein

2014 Asbestos Disease Awareness Organization International Asbestos Awareness Conference Program  

10th Annual ADAO International Asbestos Awareness Conference “Where Knowledge and Action Unite” April 4 – 6, 2014 Washington, D.C.

2014 Asbestos Disease Awareness Organization International Asbestos Awareness Conference Program  

10th Annual ADAO International Asbestos Awareness Conference “Where Knowledge and Action Unite” April 4 – 6, 2014 Washington, D.C.

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