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9TH ANNUAL

ASBESTOS AWARENESS CONFERENCE

The Asbestos Crisis: New Trends in Prevention and Treatment Washington, D.C.

MARCH 22 – 24, 2013

Conference Event Schedule FRIDAY, MARCH 22

SATURDAY, MARCH 23

U.S. Capitol Tours

ADAO Awards & Recognition Dinner

Private Speakers, Honorees, and Sponsors Dinner (By Invitation Only) 6:30 PM – 8:30 PM

6:30 PM – 9:00 PM

SATURDAY, MARCH 23

Keynote Address and Conference 8:00 AM – 5:00 PM

SUNDAY, MARCH 24

Unity and Remembrance Brunch 9:30 AM – 11:30 AM


March 22, 2013 Dear Registrants, Speakers, Honorees, Sponsors, Volunteers, and Guests: On behalf of everyone at the Asbestos Disease Awareness Organization (ADAO), I welcome you to Washington, D.C. for our 9th Annual International Asbestos Awareness Conference. This year’s theme is: “The Asbestos Crisis: New Trends in Prevention and Treatment.” Thank you for participating in our exciting conference weekend. Together, we have worked to strengthen our educational, community, and advocacy initiatives. Thank you for being a critical part of our grassroots movement. This is an exceptional time for ADAO, as seven different nations have come to this year’s conference. I am inspired and encouraged by the advances we have made in asbestos disease awareness since 2004. It feels great to be back in Washington, D.C. for the conference – the first time since 2005. This city has become a 2nd home for ADAO as we have worked with individuals, organizations, agencies, and members of Congress, all of whom have enabled us to make a difference. This conference would not be possible without the hard work of many wonderful people, and I offer my sincere gratitude to the speakers, honorees, sponsors and volunteers. Special thanks to our Executive Assistant, Herman Hamilton and our Asbestos Awareness Conference Committee chairs. We have worked for nearly a year to make this event a reality. ADAO is in debt to our two partners, the Environmental Information Association and the Independent Asbestos Training Providers who are year-long partners for prevention. Sue Ann Taylor and her Zeel TV team, part of our ADAO family, rolled up their sleeves to maximize our conference outreach. We are pleased to welcome our National Spokesperson, Jordan Zevon. He brings a true light to ADAO, sharing his leadership, compassion, and musical talents since 2005. I am also grateful to Barbara Minty McQueen, who uses her unique voice for asbestos disease victims. Jordan and Barbara speak up and out, strengthening our collective voice. 2013 marks our 9th conference and the 9th resolution unanimously passed by the United States Senate designating April 1-7 as National Asbestos Awareness Week. This important week offers hope for thousands of victims of asbestos diseases. We observe this week in conjunction with Global Asbestos Awareness Week, in unity with numerous countries and participants from around the world. We strongly encourage Congress and global leaders to build on the conference momentum and National Asbestos Awareness Week by continuing legislative efforts to prohibit the mining and use of asbestos worldwide - the only way we can hope to eliminate these preventable diseases. Thank you for joining us today. This conference reaffirms together, change is possible. In unity,

Asbestos Disease Awareness Organization is a registered 501(c)(3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · (310) 251-7477 www.AsbestosDiseaseAwareness.org


ADAO 2013 Annual International Asbestos Awareness Conference Agenda   

“The Asbestos Crisis: New Trends in Prevention and Treatment”

  Conference Agenda FRIDAY, MARCH 22, 2013 Private U.S. Capitol Luncheon & Tour for Family, Patients & Caregivers (By Invitation 11:30 - 3:00 PM Only) U.S. Capitol Tour for Speakers, Honorees, Sponsors & Distinguished Guests (By Invitation 11:45 – 1:30 PM Only) SATURDAY, MARCH 23, 2013 8:00 - 8:30 AM Registration and Continental Breakfast 8:30 – 8:40 AM Welcome and Opening Remarks: Linda Reinstein, ADAO President/CEO and Co-Founder 8:40 - 9:00 AM Dr. Richard Lemen, Dr. Arthur Frank, Brent Kynoch, and Christine Winter Session I 9:00 - 9:10 AM 9:10 - 9:20 AM 9:20 - 9:30 AM 9:30 - 9:40 AM 9:40 - 9:55 AM 9:55 - 10:10 AM 10:10 - 10:25 AM 10:25 - 10:40 AM 10:40 - 10:50 AM 10:50 - 11:20 AM 11:20 AM - 12:20 PM Session II 12:20 - 12:30 PM 12:30 - 12:45 PM 12:45 - 1:00 PM

Medical Advancements: Diagnosis and Treating Mesothelioma and Other AsbestosRelated Diseases (Chairperson: Richard Lemen, PhD, MSPH) Linda Reinstein, ADAO President/CEO and Co-Founder, The Global Asbestos Struggle: Progress and Challenges Meagan Jensen, The Unacknowledged Hazard Dr. Richard Lemen, The Role of Government in Preventing Asbestos Exposure Dr. Arthur Frank, Asia: Diagnosing and Treating Asbestos-Related Disease Dr. Paul Demers, Latest Findings from the UN International Agency for Research on Cancer (IARC) Dr. Christine Oliver, Medical Monitoring, Screening, and Surveillance of Asbestos-Exposed Groups Dr. Brad Black, Update from the Center for Asbestos-Related Disease (CARD) Dr. Laura Welch, Occupational Exposure: Reducing Workers’ Risk Q&A Dr. Aubrey Miller, Keynote Speaker, Asbestos in the Environment and Workplace: Public Health Issues and Concerns Lunch Patients and Caregivers: Navigating the Medical Maze (Chairperson: Brad Black, MD) Kristin Samuelson, Asbestos: Toward the Global Ban of a Mineral That Kills Eleanor Ericson, RN, BSN, CCRN and Lisa Hyde-Barrett, RN, Patient Advocacy: From the Hospital to the Home Elizabeth Ness, NCI: Understanding Clinical Trials Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · (310) 251-7477 www.AsbestosDiseaseAwareness.org


ADAO 2013 Annual International Asbestos Awareness Conference Agenda   

“The Asbestos Crisis: New Trends in Prevention and Treatment”

2:20 - 2:35 PM 2:35 - 2:50 PM 2:50 - 3:05 PM 3:05 - 3:15 PM

Linda Reinstein, ADAO President/CEO and Co-Founder, Supportive Resources in the Mesothelioma Community Survey Q&A Prevention: What Is It? Where Is It? What Do I Do? (Chairperson: Linda Reinstein) John Thayer, The Real Story: Asbestos under the Steps of the Capitol Brent Kynoch, Preventing Do-It-Yourself Home Exposure Tony Rich, "Occupational Exposure: Asbestos - Still a Present Danger" Sean Fitzgerald, Hidden Catastrophe Behind Disasters: New Information to Reduce Environmental Asbestos Exposure Tom Laubenthal, OSHA Violations: Asbestos Regulation in America Dr. Charles Levenstein, Lessons Learned from AHERA: Asbestos Management in Schools Jim Millette, Consumer Exposure: Buyers Beware Panel Q & A

Session IV

Advocacy: Global Ban Asbestos Action (Chairperson: Arthur Frank, MD, PhD)

3:15 - 3:25 PM 3:25 - 3:35 PM 3:35 - 3:45 PM 3:45 - 4:00 PM 4:00 - 4:15 PM 4:15 - 4:30 PM 4:30 - 4:45 PM 4:45 - 4:55 PM 4:55 - 5:00 PM

Emily Reinstein, Asbestos Victims: From Our Homes to the Hill Jordan Zevon and Barbara McQueen, Celebrity Voices Jill Cagle and Heather Von St. James, North America: Turning Anger to Action Dr. Barry Castleman, Global Civil and Criminal Litigation: Trends and Judgments Fernanda Giannasi, Brazil: From the Mines to the Courtroom Christine Winter, United Kingdom Ban Asbestos Efforts: Where Professionals and Patients Unite Geoff Fary, Australian Asbestos Management Review Panel Q & A Conclusion

1:00 - 1:15 PM 1:15 - 1:25 PM Session III 1:25 - 1:35 PM 1:35 - 1:50 PM 1:50 - 2:05 PM 2:05 - 2:20 PM

SATURDAY, MARCH 23, 2013: ADAO Awards & Recognition Dinner, 6:30 - 9:00 PM Welcome Reception Performance by Jordan Zevon, ADAO National Spokesperson 2013 Awards Ceremony U.S. Representative Lois Capps, Tribute of Hope Award Video Acceptance (Presenter: Dr. Richard Lemen) Dr. Celeste Monforton, Dr. Irving Selikoff Lifetime Achievement Award (Presenter: Dr. David Michaels) Karen Banton, Tribute of Inspiration Award (Presenter: Ann Samuelson) The International Association of Heat and Frost Insulators and Allied Workers, Tribute of Unity Award (Presenter: Dr. Arthur Frank) Rob Cagle, Alan Reinstein Award (Presenter: Linda Reinstein) Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · (310) 251-7477 www.AsbestosDiseaseAwareness.org


ADAO 2013 Annual International Asbestos Awareness Conference Agenda   

“The Asbestos Crisis: New Trends in Prevention and Treatment” Mavis Nye, Alan Reinstein Award Video Acceptance (Presenter: Linda Reinstein) 2013 Recognition Ceremony Jordan Zevon, ADAO National Spokesperson Herman Hamilton, ADAO Executive Assistant The Raye Family, Diamond Donor Baron & Budd, P.C., 2013 Platinum Sponsor Motley Rice LLC, 2013 Platinum Sponsor Simmons Law Firm, LLC, 2013 Platinum Sponsor Early, Lucarelli, Sweeney & Strauss and The Nemeroff Law Firm, 2013 Silver Sponsors SUNDAY, MARCH 24, 2013: Unity and Remembrance Brunch, 9:30 - 11:30 AM Brunch Begins 9:30 AM Program Begins 10:00 AM

11:30 AM

Welcome and Opening Remarks by Dr. Richard Lemen Karen Banton, Keynote Speaker, We Are Not Victims, We Are Victors Lou Williams, Mesothelioma Warriors Unite Dr. Brad Black, Stephen M. Levin Foundation Performance by Jill Cagle, Blessings (written by Laura Story) Candle Lighting led by Ellen Costa Conclusion

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · (310) 251-7477 www.AsbestosDiseaseAwareness.org


2013 ADAO Conference Biographies: Speakers and ADAO Leadership Julie Amento is the daughter ADAO volunteer, Marilyn Amento and the late Joe Amento, Jr., who died of mesothelioma when Julie was only 8 years old. Julie will be graduating from high school in June 2013 and plans to attend Muhlenberg College in the Fall. An avid reader and creative writer, Julie loves stage acting and plans to pursue both writing and acting in college. In April, Julie will perform the roles of a few characters in her school’s production of “The Laramie Project”. Julie is also an accomplished flutist in her school’s Concert Band, Jazz Ensemble and related competitions. She loves terrifying roller coasters, scary movies and the BBC series, “Dr. Who”. Jul has volunteered at several of ADAO’s conferences, including as Timekeeper for our speakers.

Marilyn Amento is ADAO's State Representative for Pennsylvania and Family Tribute Chair. Marilyn is the widow of Joe Amento, Jr. who died of mesothelioma at the age of 53, only 6 months after his first symptom. Joe was exposed to asbestos approximately 40 years prior while visiting his father at one of the several asbestos plants, and playing on asbestos scrap piles in the small borough of Ambler, a Philadelphia suburb. Marilyn has a Master’s Degree in Human Services Management from The Heller School of Brandeis University, and is also the mother of two teens, Joe and Julie. She channels her grief and anger with the asbestos industry by working with ADAO, fundraising, and educating the public about asbestos through her strong Facebook presence. Karen Banton is a strong advocate on behalf of asbestos disease sufferers and their families, fervently continuing the legacy left by her late husband Bernie Banton AM. During those all-consuming years Bernie spent as the public face for asbestosdisease sufferers of Australia, behind the scenes, Karen very much 'walked the walk' with him. Karen was every bit as passionate as Bernie for the cause, and even more so with his passing in November 2007. In Australia she has now become the public face for this mission and the ongoing fight for justice. In 2009 Karen, along with a number of supporters, founded the Bernie Banton Foundation, with its’ primary aims being to provide support and information to asbestos related disease sufferers and their families, and facilitate community awareness of asbestos and its' dangers. Brad Black, PhD has been the Medical Director and CEO for the Center for Asbestos and Related Disease in Libby, Montana since 2000. He has been a physician in the Libby medical community since 1977 and became the Lincoln County Health Officer in 1984. Beginning in 1999, he worked closely with Dr. Alan Whitehouse, a Spokane, WA pulmonologist, for 9 years. Since 2000, Dr. Black has had the opportunity to care for thousands of patients and this longitudinal observation of progressive pleural fibrosis has led to a clear characterization of Libby amphibole asbestos disease. CARD continues to provide asbestos health screening and care to a Asbestos Disease Awareness Organization is a registered 501(c)(3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.251.7477 www.AsbestosDiseaseAwareness.org


2013 ADAO Conference Biographies: Speakers and ADAO Leadership population with significant Libby Amphibole exposure and related diseases. In 2008 he presented at the National Institute of Health/National Cancer Institute about the progressive pleural fibrosis and mesothelioma identified in those exposed to Libby amphibole asbestos. He was instrumental in initiating research on Libby amphibole asbestos health effects. His work has expanded into research leading to an association with pulmonologists and occupational medicine specialists from multiple academic centers around the U.S. In 2010, Dr. Black became an adjunct professor at Mount Sinai School of Medicine in New York City. He has collaborated on a number of professional journal publications, and most recently he participated in a National Institute of Environmental Health Sciences working group that developed a publication on the non- neoplastic, pleural endpoints. Today, Dr. Black continues his dedicated efforts to providing excellent healthcare, outreach, and research for asbestos related diseases. Jill Cagle is the surviving spouse of Meso Warrior Robbie Cagle, who lost his 6 year battle with Peritoneal Mesothelioma on 9-11-11 at the age of 46. She is a mother and now grandmother of 3. She is a Christian and her faith in God truly sustains her. She is the lead singer in the Band Backstreet and plays the Fiddle. She makes primitive crafts and candles and she loves to ride her Harley and feel the wind in her hair. She has been associated with ADAO since 2007 and has now started an annual Motorcycle Ride, "Ridin the Wind With Rob" which includes a 110 mile ride, dinner, silent auction, raffles and t-shirt sales to raise funds for awareness and ultimately a CURE of Mesothelioma. Jill and Rob marched on Capitol Hill in 2010 to help get Illinois to sign the National Asbestos Awareness Day Bill and also met with the DOD. She is committed to doing whatever it takes to get this killer 100 % banned. She is truly honored and proud to be a part of this organization. Barry Castleman, ScD is an Environmental Consultant trained in chemical and environmental engineering. He holds a Doctor of Science degree from the Johns Hopkins School of Public Health. He has been a consultant to numerous agencies of the US government and other governments, international bodies, and environmental groups dealing with a wide range of public health issues. He has testified as an expert in civil litigation in the US on the history of asbestos as a public health problem and the reasons for failure to properly control asbestos hazards. Dr. Castleman has spent the past 40 years working on asbestos as a public health problem.

Ellen Costa started as a volunteer with ADAO in 2012 and is honored to be of service to this very special organization; its mission, founders and supporters. Professionally, she has been in the financial services industry for over 25 years and served firms in marketing, communications, product management and strategic business development. Her current role at Wells Fargo Home Mortgage is as a strategic consultant in the financial reform regulatory environment. The awareness, family support and leadership ADAO provides in creating the change needed in this world is truly powerful. Her interests and passions reside in venues associated with creating an environmentally safe and sustainable environments for our families and future generations.

Asbestos Disease Awareness Organization is a registered 501(c)(3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 路 Redondo Beach 路 California 路 90278 路 310.251.7477 www.AsbestosDiseaseAwareness.org


2013 ADAO Conference Biographies: Speakers and ADAO Leadership Paul Demers, PhD comes to OCRC from the University of British Columbia, where he was a Professor in the School of Environmental Health. As well as being Director of the OCRC, he is also a Professor with the University of Toronto’s Dalla Lana School of Public Health. He has an MSc in Industrial Hygiene and a PhD in Epidemiology, both from the University of Washington in Seattle. Paul is internationally recognized for his expertise on the health effects of workplace exposures and sits on many expert panels, including the International Agency for Research on Cancer working groups that evaluated carcinogens such as dusts and fibres, firefighting and formaldehyde. He has extensive research experience and accomplishments, including his leadership of a national program known as “CAREX Canada,” a workplace and environmental exposure database. Over his academic career he has held numerous research grants, supervised many graduate students and has published extensively. Suzanne Dupree has been a volunteer for over 40 years, and that role has always been one of the most rewarding of her life. Her present employment at the District Attorney's office allows her to work for justice for victims daily. Prior to her current job, she worked 15 years as a curriculum specialist for school districts, and earlier, for the President of the Associated Press in New York. Several years ago, on vacation, she met Linda Reinstein, who had just founded the Asbestos Disease Awareness Organization. She was so impressed with her commitment that she volunteered for the next conference. She has worked for ADAO as a volunteer for six years now, and for the last three years, she has served as the conference coordinator. The returns are exponential for whatever time she gives; she has an opportunity to utilize her skills in the most rewarding way possible. She donates her time for an organization that formulates political policy and advocates for practical issues on a global level. Her volunteering allows her to keep up daily, through social media, with mesothelioma victims that have become her friends. She uses the educational resources provided by ADAO to create awareness of the impact of asbestos to those outside of our ADAO family. Most importantly, she believes in Linda Reinstein. She believes that, in unity, we can make change. She is privileged to serve the mission of ADAO. Eleanor B. Ericson, RN, BSN, CCRN founded Nursing Liaisons in 2007 being keenly aware from her 30 years of experience in bedside nursing, that there was a need for postfacility care for patients released from the hospital. Ellie has been working in the Surgical Intensive Care Unit at Brigham and Women’s Hospital since 1985. Prior to that time, she worked in the Cardiothoracic ICU and the ICU Float Pool. She earned her diploma in nursing from the Mt. Auburn Hospital School of Nursing in1978 and went on to Worcester State College for her BSN. Ellie grew up in Waltham, Mass., as one of ten children – a background that gives her a unique understanding of our clients’ family relationships. She currently lives in north Central Massachusetts with her husband and three children. Geoff Fary has an unusual combination of background and experiences. From 2010 to 2012, he was the independent Chairman of the Australian Asbestos Management Review. Elected Australian Council of Trade Unions (ACTU) Assistant Secretary in 2007, and reelected in 2009, he previously had responsibility for the national peak council’s policy on OH&S – including asbestos. He had earlier worked as a farm labourer, sheep shearer, administrator, Victorian Director of the Australian Trade Union Training Agency (TUTA), Chief of Staff to a Federal Cabinet Minister, Human Resources Director and company director with George Weston Foods Limited, CEO of Industrial Relations Victoria, Employee Relations Manager at Nestle Australia and Executive Director of the Asbestos Disease Awareness Organization is a registered 501(c)(3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.251.7477 www.AsbestosDiseaseAwareness.org


2013 ADAO Conference Biographies: Speakers and ADAO Leadership Association of Professional Engineers, Scientists and Managers, Australia (APESMA). Geoff is a member of the Australian Institute of Company Directors and serves on the Board of the Australian Institute of Management. Sean Fitzgerald, P.G., President of Scientific Analytical Institute, Inc., is a professional geologist and microscopist with 25 years experience managing growing businesses and laboratories across the country. He has been guest speaker at asbestos workshops and conferences as well as local, state, and federal regulatory meetings and reviews, and advises private and governmental entities on issues of asbestos regulation, science, and process development. As a scientist, Sean is expert and instructor for PLM and PCM light microscopy, microprobe, TEM and SEM electron microscopy, AA, IC, HPLC, and ICP wet chemistry techniques, and mineral phase identification by XRF and XRD. Mr. Fitzgerald has been retained and has given testimony as an expert witness and researcher on asbestos in soils, asbestos in talc, naturally occurring asbestos, and asbestos in household products, with his work appearing before English Parliament and the US Senate, as well as state and local courts from New York to California. Mr. Fitzgerald has authored numerous papers on asbestos geology and mineralogy; has served as peer review for EPA asbestos control documents, and is currently commissioned as an author and asbestos expert for ASTM international. He has spoken on asbestos issues before the Environmental Information Association (EIA- formerly the National Asbestos Council: NAC), the Asbestos Disease Awareness Organization (ADAO), American Society for Testing Materials (ASTM International), the American Industrial Hygiene Association (AIHA), and at the National Press Club in Washington, DC. Arthur L. Frank, PhD, MD is co-chair of ADAO's Science Advisory Board and serves as Professor of Public Health and Chair of the Department of Environmental and Occupational Medicine at the Drexel University School of Public Health in Philadelphia. Trained in both occupational medicine and internal medicine, Dr. Frank has been interested in the health hazards of asbestos for more than 35 years. He has published a great deal of work on the hazards of asbestos, and clinically cared for asbestos effected patients. He has lectured internationally about the problems of asbestos, and worked in many settings looking at the diseases caused by this material.

Fernanda Giannasi, is a Civil and Safety and Heath Engineer and has been a symbol of the struggle to ban asbestos in Brazil. As Labour Inspector for the Ministry of Labor in São Paulo state since 1983, Giannasi defends the public interest as regards worker safety and health. Having been exiled to Osasco city in 1995, Giannasi became aware of a number of cases of asbestos disease amongst the local population. In collaboration with former asbestos workers in this industrial city, she began an investigation into the incidence of asbestosrelated diseases in the whole state of São Paulo, the major producer and user of asbestos. Although Brazil still allows asbestos in most of the states of the federation, the Supreme Constitutional Court should decide this year if asbestos can be used or not since it has been banned in more than 50 countries worldwide and 5 Brazilian states including São Palo. Asbestos is still mainly used in the Asbestos Disease Awareness Organization is a registered 501(c)(3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.251.7477 www.AsbestosDiseaseAwareness.org


2013 ADAO Conference Biographies: Speakers and ADAO Leadership production of roofing. Giannasi is a founding member of Associação Brasileira dos Expostos ao Amianto (ABREA), the association of asbestos-exposed workers in Brazil that was set up in 1995 to act as the voice for Brazil’s asbestos victims, and is the coordinator of the Latin America of the Citizens’ Virtual Network Against Asbestos. She leads the struggle of more than 3500 workers who have filed lawsuits against the industry. Criminal charges driven by economic interests have been filed against Giannasi by he biggest asbestos producer in Brazil (ETERNIT), and by supporters of the still powerful pro-asbestos lobby. Giannasi has successfully widened the world discussion and has been awarded for her struggle as it has been hold last December, the 5th where she was honoured with the Prize Professional Personality of 2012 offered by the National Confederation of Liberal Graduated Workers representing the category of Engineers. According to Giannasi, “As I an activist on public health I defend an immediate world ban on the production, marketing, import and exports and use of asbestos.” James A. Grogan is the General President of the International Association of Heat and Frost Insulators, one of 14 International Unions under the Building and Constructions Trades Department of the AFL-CIO. Born in Mt. Kisco, NY, his distinguished union career which has spanned more than 56 years began in September 1956 working as a permit worker in Asbestos Workers Local Union 32, in Newark, New Jersey. After serving in the U.S. Army he returned to the trade and in short order demonstrated his leadership abilities giving rise to numerous leadership positions at the local, state, national and International levels. He has exhibited a passion for finding a cure for mesothelioma and other asbestos induced diseases, which have so decimated his membership and their families for generations. Mr. Grogan and his Union continue to work with doctors, researchers, attorneys and organizations such as the Mesothelioma Applied Research Foundation, the Pacific Meso Center, and the Health Education Council. Herman Hamilton is the Executive Assistant with ADAO. After becoming familiar with the medical and legal aspects of Asbestos through his neighbor and longtime friend of 30 years, Dr. Barry Castleman, Herman joined ADAO in January of 2005 as the Veterans Representative. Presently, Herman assists Linda in the day-to-day operations of ADAO and amongst his many duties, he has been a liaison for other like-minded asbestos groups. He also works with Congressional staffers to set up meetings regarding ongoing legislation. His proudest accomplishment has been his work to defeat the Asbestos Trust Fund. The goal he would like to achieve the most is the passage of legislation for a total ban of Asbestos. Outside of ADAO, Herman has served on the Board of Directors of Legal Aid Bureau of Maryland for the past 12 years and counting. Elizabeth Harty is a dedicated ADAO volunteer. Upon graduating from Texas Tech University, Elizabeth assisted in plant genetics research prior to being recruited by Calgon’s Water Management Division. While with Calgon, she spent approximately 90% of her time in the field serving various industrial plants: primarily in the power, oil, and paper industries of the Gulf Coast states. Elizabeth soon discovered from the men working in these plants that it wasn’t a plant explosion they most feared, it was “that lung disease” their fathers endured. This, and other environmentally-related health complaints offered by these industrial workers, began Elizabeth’s shift away from serving in the industrial chemical arena toward health related fields. Always Asbestos Disease Awareness Organization is a registered 501(c)(3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.251.7477 www.AsbestosDiseaseAwareness.org


2013 ADAO Conference Biographies: Speakers and ADAO Leadership maintaining an interest in fiber-induced diseases, Elizabeth is pursuing a certificate in public health with the intention of earning graduate degrees in public health policy and biostatistics. She is currently interested in the disease potential of the serpentine, antigorite. Lisa Hyde-Barrett has been a thoracic surgery nurse for nearly 25 years, and has had the privilege of caring for countless mesothelioma patients over the years. Lisa has worked alongside some of the leading authorities on treating mesothelioma at Brigham and Women’s Hospital through the International Mesothelioma Program (IMP). Lisa is also a wellness advocate and she understands the relationship between awareness and cancer prevention and spends much of her time educating patients and their families about the importance of living a healthy lifestyle. She also knows that mesothelioma is one disease that can only be prevented through avoidance of asbestos, and once it develops it is challenging to treat. Lisa also works with Nursing Liaisons, where the nurses not only offer medical care to patients, but also help to educate patients synchronizing their diagnosis with each unique, individual journey of mesothelioma. Lisa has been called upon to share her knowledge of mesothelioma at various conferences and educational seminars. In September, she co-presented a session at the 11th International Conference of the International Mesothelioma Interest Group entitled, “The Complex Discharge Needs of the Mesothelioma Patient.” She and her colleagues discussed the potential barriers mesothelioma patients and their families may encounter that could impede learning how to care for the patient and how nurses can offer support to help overcome those obstacles. She is certified in Guided Care which was presented from Johns Hopkins Hospital. Also, Lisa recently has been certified in Reiki, a Japanese “laying on hands” technique for stress reduction and relaxation that promotes healing. Meagan Jensen joined ADAO as an intern in June of 2011. She attended her first year of law school at Penn State Dickinson School of Law after receiving her B.A. in History from UC Santa Barbara. Meagan is currently a third year law student at the UC Davis King Hall where she focuses on international and domestic social justice issues including worker-employer relations, employee health and safety policy, and their intersection with immigration law. While with ADAO Meagan had the opportunity to use her studies in a variety of ways - from speech drafting, to attending Congressional meetings, to developing her blog writing and social media skills. Meagan is honored to be a part of ADAO and the incredible work ADAO does.

J. Brent Kynoch is the President of Kynoch Environmental Management, Inc. (KEM), which was formed in 1996 to provide value engineered consulting services within the asbestos abatement industry. Since 1996, KEM has earned a reputation as one of the leading consultants in asbestos inspection, assessment, abatement design, and management. J. Brent Kynoch has been a leader in the asbestos abatement industry since 1984. KEM’s licensed Asbestos Inspectors and Management Planners have provided extensive service in support of federal AHERA and NESHAP regulations. Over the years, they have successfully provided asbestos consulting for historic restorations, hospital renovations, and AHERA school abatement projects. With their experience in asbestos testing and management for the federal agencies, the Asbestos Disease Awareness Organization is a registered 501(c)(3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.251.7477 www.AsbestosDiseaseAwareness.org


2013 ADAO Conference Biographies: Speakers and ADAO Leadership Department of Defense, and architecture and engineering firms, they have earned a reputation for diversity and dependability. Doug Larkin is the Communications Director and Co-Founder of Asbestos Disease Awareness Organization (ADAO) – which works to help raise awareness about asbestos related diseases, while serving as a global community for asbestos victims and their families. Doug holds a B.A. in political science from Muskingum University, New Concord, Ohio. Doug is the President & CEO of Larkin Communications, a strategic communications and public affairs firm based in Washington, DC. He has worked on numerous successful legislative campaigns on behalf of large technology companies and national trade associations. In addition, he is considered an expert in corporate communications, brand identity, as well as message development and dissemination. Doug has also worked as the press secretary and the communication director for Congressman Kevin Brady (R-08-TX). Rep. Brady is the Republican Deputy Whip and a senior member of the House Ways & Means Committee. “Congress and the media respond to compelling stories. It’s through your stories and donations to ADAO, that enables us to advocate a strong message for present and future victims of asbestos related disease.” Doug has worked tirelessly behind the scenes garnering the attention of the media and advocating for the rights of asbestos victims and their families. Doug’s father-in-law, William D. Shields, was exposed to asbestos, and died from Mesothelioma. Tom Laubenthal currently serves as the Technical Chief for The Environmental Institute in Marietta GA. There he is responsible for the development and maintenance of a variety of training programs related to asbestos and lead-based paint control industries. He has 29 years of industry service with a significant experience base in the asbestos control industry. He has served as a PLM Technical Expert for the NIST/NVLAP program since 1988. He has served as the National President of the Environmental Information Association, and was the founding President of Georgia Chapter. Mr. Laubenthal serves on a variety of national-level committees, has published extensively in print and e-media, and regularly speaks nationally and internationally in the area of asbestos detection and control. He received his B.S. in Geology from Georgia State University. Richard Lemen, PhD is a former Assistant Surgeon General of the United States and also served as the Acting Director and the Deputy Director of the National Institute for Occupational Safety and Health before his retirement. He has been a practicing epidemiologist for more than forty years, and has taught graduate level courses on environmental and occupational health issues, including asbestos, at the Rollins School of Public Health at Emory University. He has also testified on behalf of asbestos victims; Dr. Lemen is a world-renowned author, speaker, and lecturer on this topic.

Asbestos Disease Awareness Organization is a registered 501(c)(3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.251.7477 www.AsbestosDiseaseAwareness.org


2013 ADAO Conference Biographies: Speakers and ADAO Leadership Charles Levenstein, Ph.D. is Professor Emeritus of Work Environment Policy at University of Massachusetts Lowell. He has a Ph.D. in economics from M.I.T. and a masters degree in physiology and occupational health from Harvard School of Public Health. He is Editor Emeritus of New Solutions Journal of Occupational and Environmental Health Policy, and author of numerous articles in peer-reviewed journals as well as of several books, including The Cotton Dust Papers (with G. DeLaurier and M.L. Dunn) and The Point of Production (with J. Wooding). He has just completed editing The Toxic Schoolhouse with Madeleine Scammel. Captain Aubrey K. Miller, M.D., M.P.H., currently Senior Medical Advisor, Office of the Director, National Institute of Environmental Health Sciences (NIEHS), National Institutes of Health.(NIH). He has responsibility for strategic planning and coordination of environmental health issues and activities among HHS and other federal agencies, as well as supervisory oversight of the NIEHS office in Bethesda, MD. Dr. Miller has longstanding experience, publications, speaking engagements, and contributions to a wide range of occupational and environmental health issues and policies. He has had extensive involvement in the Gulf Oil Spill response providing testimonies before Congress on the health concerns of environmental exposures and coordinating a variety of ongoing NIEHS activities. His has worked on health issues for numerous disaster responses including Hurricane Sandy, H1N1 pandemic, anthrax attacks, Hurricane Katrina, and WTC response. Additionally, Dr. Miller has longstanding involvement with asbestos issues; helping to lead the federal response to the asbestos contamination in Libby, Montana; assessing health effects & exposures, developing public health alerts, and facilitating improved access to health care and needed research. He is also working on newly identified concerns related to hydraulic fracturing and erionite exposures in the U.S. He is board certified in Occupational and Environmental Medicine. James Millette, PhD is a consulting scientist involved in environmental/ forensic/particle and materials studies since 1972 primarily, using microscopy techniques. His previous work includes 11 years as a research scientist at the U.S. Environmental Protection Agency Research Center in Cincinnati, Ohio and 5 years at McCrone Environmental Services performing and supervising analysis of particulates and product constituent analysis by microscopic techniques.

Asbestos Disease Awareness Organization is a registered 501(c)(3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 路 Redondo Beach 路 California 路 90278 路 310.251.7477 www.AsbestosDiseaseAwareness.org


2013 ADAO Conference Biographies: Speakers and ADAO Leadership Barbara Minty McQueen is the widow of American film star Steve McQueen, and is a former model and photographer. She is also the author of Steve McQueen: The Last Mile, which documents the three-and-a-half year relationship between the two and includes candid photographs from 1977 to 1980. McQueen has hosted several art exhibits of her work with shows in London, Tokyo, San Francisco, Nashville, Phoenix and Idaho, where she resides.

Celeste Monforton, DrPH, MPH is a professorial lecturer in the Department of Environmental and Occupational Health at the George Washington University's School of Public Health and Health Services. Her research includes assessment of worker health and safety laws and policies, and their effectiveness in protecting workers from illnesses, disability and death. She has published articles on strategies used by economic interests to manipulate scientific evidence to create uncertainty about health risks in order to delay protective regulatory action. Prior to her academic appointment, Dr. Monforton was a federal employee at the U.S. Department of Labor’s Occupational Safety and Health Administration (OSHA, 1991-1995) and Mine Safety and Health Administration (MSHA, 1996-2001). Dr. Monforton served on the special panels appointed by the West Virginia Governor to investigate the January 2006 Sago coal mine disaster that took the lives of 12 workers, and the April 2010 disaster at Massey Energy's Upper Big Branch mine that killed 29 workers. Dr. Monforton is an active member of the American Public Health Association, and she has served in a leadership position with the organization’s Occupational Health and Safety Section. Elizabeth (Liz) Ness, RN, MSN brings with her over 30 years of nursing experience and 16 years of clinical research experience. She earned her BSN from Boston College and her MS in Nursing Education from the University of Maryland. Currently, she is a Nurse Consultant for Education at the Center for Cancer Research, part of the intramural research program, at the National Cancer Institute in Bethesda, MD. Her primary responsibilities include coordinating, developing and evaluating all clinical research educational activities at the Center including orientation and ongoing continuing education programs for nurses and data managers, as well as physician investigators. Prior to working for the NCI, Ms. Ness worked for six years as a Research Nurse with Lombardi Cancer Center in Washington, D.C. and for three years with a firm in Bethesda, MD where she worked on clinical trials as a contractor for the NCI. In addition to presentations at the NCI and NIH, she has recently presented clinical research related topics for the Oncology Nursing Society, the International Society of Nurses in Cancer Care and various cancer centers.

Asbestos Disease Awareness Organization is a registered 501(c)(3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.251.7477 www.AsbestosDiseaseAwareness.org


2013 ADAO Conference Biographies: Speakers and ADAO Leadership Mavis Nye became a Meso Warrior on Facebook and joined with other sufferers around the world. She was asked to join the Macmillan Team to become a Patient Representative and attend the East Kent Cancer network meetings and also join the Doctors and Nurses of the Lung Disease Organisation Group where she participated and offered her opinions of the running of the NHS Trust. Nye also gives speeches to the medical staff about her experience as a mesothelioma patient. Nye won the IATP Meso Warrior Award at Derby in January for her contribution of offering advice and helping those newly diagnosed. This year at ADAO’s conference, she is being presented with the 2013 Alan Reinstein Award for her commitment to education, advocacy, and support to countless patients and families. Christine Oliver, MD, MPH, MS, FACPM is President of Occupational Health Initiatives, Inc. She is an Associate Professor of Clinical Medicine at Harvard Medical School and an Associate Physician in the Department of Medicine (Pulmonary and Critical Care Unit) at the Massachusetts General Hospital in Boston. Board certified in internal medicine and in preventive (occupational) medicine, Dr. Oliver’s primary specialty is Occupational and Environmental Medicine, with an emphasis on occupational lung disease. She is the Co-Director of Occupational and Environmental Medicine at the Massachusetts General Hospital. There she evaluates and cares for patients with a variety of occupational and environmental diseases, including occupational asthma, interstitial lung disease associated with exposure to asbestos and beryllium, and building-associated illness. Dr. Oliver has done research and published in the area of occupational lung disease. An important focus of her research and clinical activities has been asbestos-related disease. She has lectured frequently on this topic. Dr. Oliver is responsible for medical surveillance of a group of public school custodians employed by the City of Boston and exposed to asbestos during the course of that work. She consults on medical-legal issues and provides expert witness testimony. Dr. Oliver has testified before Congress on issues related to workplace exposures and related disease. She was an active participant in the implementation of medical aspects of the 1991 Workers’ Compensation Reform Act signed into law in Massachusetts. Emily Reinstein is the daughter of ADAO Co-Founder, Linda Reinstein, and is currently a sophomore at the University of Southern California studying International Relations. Since the age of ten, Emily has worked with her mother and other volunteers to expand ADAO. After helping to build ADAO’s social media network through Facebook and other platforms, as well as co-founding the Emerging Leaders Program, she has seen the importance of international cooperation and the involvement of the younger generation as we move forward.

Asbestos Disease Awareness Organization is a registered 501(c)(3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.251.7477 www.AsbestosDiseaseAwareness.org


2013 ADAO Conference Biographies: Speakers and ADAO Leadership Linda Reinstein is the President/CEO and Co-Founder of Asbestos Disease Awareness Organization (ADAO). Reinstein became an activist when her husband, Alan, was diagnosed with mesothelioma in 2003. She co-founded the Asbestos Disease Awareness Organization in 2004, and now serves as President and CEO. Reinstein has been a strong political voice for justice in every major asbestos-related issue. Reinstein, a highly sought-after international speaker, has frequently served as a Congressional witness and presented at the Department of Labor (OSHA), British House of Commons, United Nations Congress, American Public Health Association, and to other audiences around the world. Recognized as an expert with more than 35 years of nonprofit experience in building and sustaining grassroots organizations, Reinstein specializes in developing, implementing, and leveraging integrated social media campaigns. Recently, Reinstein was asked to create social media educational materials and facilitate a workshop in Asia. Focused on national and international occupational and environmental disease prevention, Reinstein’s proficiency in the powerful advocacy space of online media has greatly increased the effectiveness of ADAO’s core mission of education, advocacy, and community support actions. She has won many prestigious awards including the Global Impact Award (2013), from the Independent Asbestos Training Providers; Bruce Vento Hope Builder Award (2011), from the Mesothelioma Applied Research Foundation; the highest level of the Presidential Volunteer Service Award for her 4,000 hours of volunteerism during her lifetime (2010); and the Heart and Soul Award in from the Manhattan Beach Women in Business Association (2005).

Laurie Rice, the newest member of the Board of Directors, is an associate at the criminal defense law firm of Bird and Bird in Torrance and also volunteers at the Los Angeles County Bar Domestic Violence Project assisting victims in obtaining temporary restraining orders. Born and raised in Los Angeles, she received her B.A. in Art History from UCLA and a M.A. in special education from CSUN. She taught deaf and hard of hearing students for five years before attending Loyola Law School. A former Deputy District Attorney, Laurie met her husband Stuart in the Compton court house as opposing counsel and took a long hiatus from the law while raising their two children and actively volunteering in the community.

Tony Rich has served as an industrial hygienist and environmental technician in the consulting field for the past 19 years, specializing in asbestos-related work, including: inspections, abatement monitoring/sample analyses, project management and regulatory compliance, and worker training. He has also received microscopy training from McCrone Research Institute for identification of bulk asbestos via polarized-light microscopy (PLM). Through the course of his occupation and personal endeavor, Tony has developed an extensive and compelling collection of asbestos-related photographs, product materials, artifacts, historical books, industry documents, and other related media. In promotion of asbestos awareness advocacy, Tony has made available many of the asbestos-related digital images, provided asbestos product materials for research and educational purposes, and created asbestos training display aides for various organizations worldwide.

Asbestos Disease Awareness Organization is a registered 501(c)(3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.251.7477 www.AsbestosDiseaseAwareness.org


2013 ADAO Conference Biographies: Speakers and ADAO Leadership Kristin Samuelson is a full-time student at Portland State University in Portland, Oregon. She is studying political science with an emphasis in law and legal studies, as well as philosophy. Kristin lost her grandfather to mesothelioma just days before her first birthday. As a result of this loss, Kristin is passionate about justice and became involved in this fight in the hopes of having a positive impact against the insidious diseases caused by asbestos exposure.

Freddi Segal-Gidan, PA, PhD is the director of the Rancho los Amigos/USC California Alzheimer’s Disease Center. She is a physician assistant with over three decades of extensive clinical experiences, most of which has been spent caring for older adults with chronic illnesses. She received her doctorate in gerontology as part of the first class of doctorate trained gerontologists in the country from the USC Leonard Davis School of Gerontology. Dr. Segal-Gidan holds appointments as assistant clinical professor in the department of neurology at the USC Keck School of Medicine and at the USC School of Gerontology. She is actively engaged in clinical care, research and training of health professionals, and a strong advocate for geriatric training of all health care providers. John Thayer is a former Supervisor for the Tunnel Workers and has worked at the AOC in Washington DC for the past 22 years. The Architect of the Capitol is responsible to the United States Congress for the maintenance, operation, development, and preservation of the United States Capitol Complex, which includes the Capitol, the congressional office buildings, the Library of Congress buildings, the Supreme Court building, the U.S. Botanic Garden, the Capitol Power Plant, and other facilities. He is a member of Local 5 Ironworkers and a highly trained steamfitter. John is also a Navy veteran of five years. He is married to Vikki, an RN and they have 2 children, Christina and Michael and 5 basset hounds. Ellen Tunkelrott Webmaster, is a Contract and Grant Administrator for the original think tank, and resides in Redondo Beach, California. She became friends with Linda and Alan Reinstein through local community volunteer activity. Linda and Ellen collaboratively brainstormed the virtual non-profit site www.asbestosdiseaseawareness.org, and Ellen developed the original site based on the concepts and direction from those sessions. She has a B.A. in Psychology from California State University, Long Beach, and an MBA from Loyola Marymount University. She is a Certified Paralegal and is licensed by the County of Los Angeles as a Legal Document Assistant. She is self-taught in web design and development. In her spare time, Ellen is an avid photographer, gardener and is a magician member of the prestigious Academy of Magical Arts, located in the world renowned Magic Castle in Hollywood, California.

Asbestos Disease Awareness Organization is a registered 501(c)(3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.251.7477 www.AsbestosDiseaseAwareness.org


2013 ADAO Conference Biographies: Speakers and ADAO Leadership Heather Von St James is a 44 year old wife to Cameron and mom to 7 year old Lily Rose. Diagnosed with Malignant Pleural Mesothelioma at the young age of 36, just 3 1/2 months after the birth of her one and only child, and now is a 7 year survivor of the disease. She is a strong advocate for The International Mesothelioma Program and Dr David Sugarbaker's work, the ADAO, and Mesothelioma Applied Research Foundation. She along with her husband blog for the Mesothelioma Cancer Alliance. She spends her spare time volunteering at her daughter's school, being with friends and family and living life to the fullest. Her favorite quote is, "Life is a banquet and most poor suckers are starving to death." And this is how she lives her life. Her goal is to bring about hope to mesothelioma patients and awareness regarding the disease. Laura Welch, MD is Medical Director for the Center for Construction Research and Training, a research and development institute affiliated with the Building and Construction Trades of the AFL-CIO, and adjunct professor of Environmental and Occupational Health at George Washington University. She previously held full time faculty positions at the Albert Einstein, Yale and George Washington University Schools of Medicine. She is the author of over 100 peer-reviewed publications, abstracts and technical reports and has served as a consultant to many federal agencies, including OSHA, NIOSH, CDC and the NIH as well as serving in leadership roles for APHA and AOEC. As CPWR’s Medical Director she manages two nationwide medical screening programs for construction workers and coordinates research portfolios on research to practice and on ergonomics. She directs a research project evaluating the effectiveness of participatory ergonomics in the construction industry, and another analyzing the causes of early retirement among construction workers. Christine Winter is the chairperson of the IATP (Independent Asbestos Training Providers) a nonprofit member organization for UK asbestos training providing companies. The organization’s core ethos is the raising of awareness through education and promoting the prevention of asbestos related diseases through its support of global charities and organizations. In 2005, Christine began publicizing and promoting the work carried out by ADAO in UK industry publications, her role encompasses communications and given Christine’s qualities and skills in this area she communicates with many organizations from Government to Labour Unions and Corporate Companies, always building a consensus as to the human suffering caused by exposure to asbestos being prevented, not only nationally but globally. Key Quote: “Asbestos destroys individuals, families and communities.” Jordan Zevon ADAO's tremendous National Spokesperson is a teacher, singer, and songwriter. Jordan was executive producer for his father, Warren Zevon's, final album The Wind. He also co-produced Enjoy Every Sandwich: The Songs of Warren Zevon, which features an all-star cast of singers and musicians. Jordan recently released his own EP entitled Jordan Zevon which is available from CDBaby.com. Jordan's immeasurable commitment to asbestos victims and concerned citizens has provided a united voice that will continue to help ensure that their rights are fairly represented and protected, while raising public awareness about the dangers of asbestos exposure and often deadly asbestos related diseases. Asbestos Disease Awareness Organization is a registered 501(c)(3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.251.7477 www.AsbestosDiseaseAwareness.org


2013 Emerging Leaders Update Paving the Way for Future Asbestos Awareness Advocacy By Emily Reinstein

For most young adults under the age of 30, asbestos and mesothelioma aren’t the most pressing thoughts in our everyday lives. However, with the help of ADAO’s talented interns and volunteers this past year, our generation is now becoming more aware of the horrors caused from asbestos. Even though none of the ADAO interns have lost a loved one to asbestos, they are all shocked by asbestos’s grim affects on the international community. Each one of them has a passion for the work we do as they see the importance of preventing exposure, increasing awareness, and banning asbestos in the United States. ADAO’s emerging leaders come from Turkey, India, and the U.S., demonstrating the power of our international reach and connections. We have grown up as tech-savvy young adults, fluent in the language of our generation, consisting of Facebook wall posts, tweets, and text messages. Although we use these communication tools to connect with our friends and share about our lives, ADAO has also helped us learn how to expand our reach through digital technology. The community of passionate victims, widows, and individuals has grown exponentially through social media platforms, as it is now easier to connect and share with people all around the world in an instant. By tapping in to our generation’s tools for communication, ADAO has been able to greatly expand within the past four years of using social media by strengthening our network, building a unified online community, and disseminating information to our followers. I believe that my generation is passionate about change, and banning asbestos and preventing exposure are certainly issues that are worthy of our time and effort. I am proud to be a part of such a progressive generation, filled with thinkers, doers, and dreamers. For me personally, my world has been altered by my father’s death, but by using the strength and wisdom I’ve gained from my experiences with ADAO, I am able to honor his memory by making a positive impact in the lives of others. ADAO has given young volunteers and interns a way to use our passion to influence people to change laws, rethink opinions, and come together to solve problems. I hope that the other leaders in the asbestos awareness community feel the same sense of pride and power that I have felt through my involvement with ADAO, and I am confident that our generation will be able to make a lasting impact on legislation and help raise awareness on a global level.


Dominique Clark has been an ADAO intern since August 2012. She is a Master of Public Policy student at the University of Southern California (USC). Following her graduation in May, Dominique hopes to work in local government, particularly focusing on community and economic development. She is thankful for the opportunity to participate in ADAO’s internship program. At ADAO, she has gained valuable experience in writing, research, and social media advocacy. Even more importantly, she has seen firsthand the strength of unified advocates passionately striving to protect civil and human rights.

John Peter Gudenzi was an ADAO intern in 2012. He is a recent graduate of the University of Southern California, where he earned his liberal arts degree with a double major in English and Philosophy. John's greatest aim is to become a true Renaissance man, a feat not easily achieved. When he is not writing music, Mr. Gudenzi spends his time writing fiction, writing poetry, drawing, sporting on the athletic field, playing Mario Kart, critically watching films, or reading. John is very interested in the cosmos, especially after finishing Stephen Hawking's thought provoking work, “The Theory of Everything.” ADAO's work has purpose, and John aims to help ban asbestos. He believes we will look back, and wonder how foolish we were to knowingly use a lethal substance for the production of goods.

Meagan Jensen joined ADAO as an intern in June of 2011. She received her B.A. in History from UC Santa Barbara and is currently a second year law student at the UC Davis King Hall. Meagan’s passions lie in international and environmental social justice issues and she has used her legal education to focus on these concerns while working with ADAO. While with ADAO, Meagan was given the opportunity to do everything from speech drafting to blog writing to meeting with asbestos victims in Washington, D.C. Meagan is grateful to ADAO for the education and support it provides around the world, and is proud to have had the chance to have been a part of, and learn so much from, this fantastic organization.

Asbestos Disease Awareness Organization is a registered 501(c)(3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.251.7477 www.AsbestosDiseaseAwareness.org


Elise Law worked weekly as an ADAO intern on marketing, strategy, fundraising, and event coordination from December 2010 until May 2012 while attending USC’s Marshall School of Business. While she has moved on to the Brand Marketing team at Taco Bell since graduating, she continues to keep tabs on ADAO's work and network of dedicated and inspiring individuals. She wishes everyone a wonderful 2013 conference and safe, healthy, happy year.

Emily Reinstein is the daughter of ADAO Co-Founder Linda Reinstein and is currently a sophomore at the University of Southern California studying International Relations. Since the age of ten, Emily has worked with her mother and other volunteers to expand ADAO. After helping to build ADAO’s social media network through Facebook and other platforms, as well as co-founding the Emerging Leaders Program, she has seen the importance of international cooperation and the involvement of the younger generation as we move forward.

Spencer Wolgang worked for ADAO from September 2011 to August 2012. He is currently in his first year at Brooklyn Law School and is an active member of the Brooklyn Entertainment & Sports Law Society and the Intellectual Property Law Association. Spencer is a graduate of Boston University, where he received his B.A. in Political Science with a concentration in International Political Systems.

Asbestos Disease Awareness Organization is a registered 501(c)(3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.251.7477 www.AsbestosDiseaseAwareness.org


2012 ADAO Summary of Accomplishments The Asbestos Disease Awareness Organization (ADAO) was founded by asbestos victims and their families in 2004. ADAO is the largest independent organization dedicated to preventing asbestos-related diseases through education, advocacy, and community support. 2012 Education Initiatives: In an effort to educate the public about the dangers of asbestos exposure, ADAO:  Published “Asbestos: Still Legal and Lethal in North America” in the Women and Environments International (WEI) Magazine’s Spring/Summer 2012 edition.  Distributed monthly eNewsletters with up-to-date asbestos-related events and news to over 3,500 contacts  Hosted ADAO’s 8th Annual International Asbestos Awareness Conference in Manhattan Beach, CA.  Continually updated ADAO’s website, which highlights asbestos-related news and events and houses extensive educational resources, including an Asbestos Video Library of conference videos.  Presented at numerous international conferences and events, including: Miles for Meso Race in Boca Raton, FL (February 2012),Yale University’s Global Health & Innovation Conference in New Haven, CT (April 2012), United Nations Rio+20 Conference on Sustainable Development in Rio de Janeiro, Brazil (June 2012),French National Association of Asbestos Victims’ (ANDEVA) “International Day of Asbestos Victims” Conference in Paris, France (October 2012), and American Public Health Association’s (APHA) 140th Annual Meeting & Exposition in San Francisco, CA (October 2012). 2012 Advocacy Initiatives: In order to advocate for an international ban on asbestos use and the mining and exportation of this known carcinogen, ADAO:  Collaborated with the Canadian Voice of Asbestos Victims to create and promote the North American Declaration for the Elimination of Asbestos-Related Diseases petition, which calls for an end to asbestos use.  Supported the U.S. Senate’s passage of the Eighth Annual Resolution to designated April 1-7 as “National Asbestos Awareness Week.”  Partnered with various national and international organizations to speak out against asbestos use and promote public health.  Advised Senate leadership on S. 847 “Safe Chemicals Act of 2011.”  Frequently published blogs to expose international instances of occupational safety and workers’ health violations and spark opposition to the continued mining, exportation, and use of asbestos.  Hosted a U.S. Senate staff briefing (January 2012).  Hosted a U.S. House of Representatives staff briefing (July 2012). 2012 Community Initiatives: In an effort to provide a community of support for those affected by asbestos disease, ADAO:  Coordinated Global Asbestos Awareness Week to raise public awareness about the prevalence of asbestosrelated diseases and the dangers of asbestos exposure.  Published frequent “Share Your Story” blogs through its website and social media platforms. Shared by victims and their families, these stories honor individuals whose lives have been devastated by asbestosrelated disease.  Hosted several virtual candlelight vigils throughout the year via ADAO’s “Light a Candle” website. These vigils provide an opportunity for individuals to honor loved ones who have lost or are currently fighting a courageous battle with asbestos-related disease.  Utilized ADAO’s Facebook Page, Facebook Group pages, and Twitter presence to provide an interactive medium for those seeking a space to share, vent, or obtain information. Asbestos Disease Awareness Organization is a registered 501(c)(3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


ADAO Leadership and Board ADAO Leadership ADAO President/CEO: Linda Reinstein ADAO Communication Director: Doug Larkin ADAO National Spokesperson: Jordan Zevon ADAO Executive Assistant: Herman Hamilton

ADAO Board of Directors Doug Larkin Dr. Freddi Segal – Gidan Ellen Tunkelrott Linda Reinstein Laurie Rice

The Asbestos Disease Awareness Organization 1525 Aviation Boulevard, Suite 318 • Redondo Beach • California • 90278 • (310) 251-7477 “United for Asbestos Disease Awareness, Education, Advocacy, Prevention, and Community Support” www.AsbestosDiseaseAwareness.org


ADAO Science Advisory Board Science Advisory Board Co-Chairmen

Arthur Frank, MD, PhD Richard Lemen, PhD, MSPH

Science Advisory Board Members

Brad Black, MD Barry Castleman, ScD Raja Flores, MD Michael Harbut, MD, MPH, FCCP Hedy Kindler, MD The Asbestos Disease Awareness Organization 1525 Aviation Boulevard, Suite 318 • Redondo Beach • California • 90278 • (310) 251-7477 “United for Asbestos Disease Awareness, Education, Advocacy, Prevention, and Community Support” www.AsbestosDiseaseAwareness.org


ADAO National Spokesman Jordan Zevon Jordan Zevon, ADAO's tremendous National Spokesman, is a teacher, singer, and songwriter. After his father, rock musician Warren Zevon, passed away from mesothelioma in 2003, Jordan accepted Warren's two posthumous Grammy Awards for Best Rock Vocal Performance and Best Contemporary Folk Album. Jordan was executive producer of his father's, final album The Wind. He also co-produced Enjoy Every Sandwich: The Songs of Warren Zevon, which features an all-Star cast of singers and musicians. Jordan released a self-titled EP and the full-length album, “Inside’s Out” featuring, “The Joke’s On Me” which he performed on The Late Show with David Letterman. Jordan has dedicated a tremendous amount of time and talent to help raise awareness about the dangers of asbestos. A passionate advocate, he works tirelessly with ADAO. Jordan has traveled to Washington DC countless times to join ADAO in meetings with Congress and key administration staff. He was instrumental in his leadership role of ADAO’s product testing that uncovered dangerous asbestos fibers in children’s toys. He regularly presents before the press, and on behalf of ADAO to help educate the public about asbestos dangers and share his personal story. He has donated his wonderful musical talents at ADAO and non-ADAO events, and participated in public service announcements – beautifully advocating through his wonderful gift. Jordan's immeasurable commitment to asbestos victims and concerned citizens has provided a united voice that will continue to help ensure that their rights are fairly represented and protected, while raising public awareness about the dangers of asbestos exposure and often deadly asbestos related diseases. The Asbestos Disease Awareness Organization is grateful Jordan is part of our family. Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


April 1, 2009

Statement from Acting Surgeon General Steven K. Galson about National Asbestos Week In recognition of ‘National Asbestos Awareness Week,’ I urge every American to become aware of the public health issues of asbestos exposure and the steps they can take to protect their health. In recent decades, because of concern about asbestos’ health effects, production and use has declined substantially. Most individuals exposed to asbestos, whether in a home, in the workplace, or out-of-doors will not develop disease- but there is no level of asbestos exposure that is known to be safe and minimizing your exposure will minimize your risk of developing asbestos-related disease. Asbestos is the name given to a group of fibrous minerals that occur naturally in the environment. Low levels of asbestos are commonly in the air as fibers enter the environment from natural rock outcroppings, products that contain asbestos, former asbestos mining and milling operations, and from disturbance of asbestos-containing material. It is when we are exposed to much more concentrated levels of asbestos that we should be concerned. Therefore, it is important for all Americans to be aware of asbestos levels in their environment. Asbestos can be dangerous if it is inhaled. Activity that disturbs asbestos causing these small fibers to float in air increases the chances of inhalation and the contraction of asbestos-related diseases. Disturbance is what leads to exposure. Do not attempt to touch or remove asbestos by yourself. Only people professionally trained and certified to safely handle asbestos should remove it. Once breathed in, asbestos fibers can remain in the lungs for years and even decades. Inhalation of asbestos fibers can cause inflammation and scarring of the lungs, changes in the lining of the chest cavity around the lung, and certain cancers. Remember that tobacco smoke greatly increases your risk of lung cancer if you have also been exposed to asbestos. If you think you have been exposed to asbestos, I encourage you to speak to your health care provider. Your provider can tell you if any of your health problems might be caused by asbestos exposure. To learn more about asbestos and asbestos related diseases, please visit: http://www.atsdr.cdc.gov/asbestos/ http://www.cdc.gov/niosh/topics/asbestos/ http://www.epa.gov/asbestos/http://www.surgeongeneral.gov/news/pressreleases/pr20090401.html

ADAO salutes the United States Senate for “urging the Surgeon General to warn and educate people about the public health issue of asbestos exposure.”


Senate Resolution 66 IN THE SENATE OF THE UNITED STATES 113th CONGRESS 1st Session

Designating the first week of April 2013 as ‘National Asbestos Awareness Week’. Whereas dangerous asbestos fibers are invisible and cannot be smelled or tasted; Whereas the inhalation of airborne asbestos fibers can cause significant damage; Whereas asbestos fibers can cause cancer such as mesothelioma, asbestosis, and other health problems; Whereas asbestos-related diseases can take 10 to 50 years to present themselves; Whereas the expected survival time for those diagnosed with mesothelioma is between 6 and 24 months; Whereas generally, little is known about late-stage treatment of asbestos-related diseases, and there is no cure for such diseases; Whereas early detection of asbestos-related diseases may give some patients increased treatment options and might improve their prognoses; Whereas the United States has substantially reduced its consumption of asbestos, yet continues to consume almost 1100 metric tons of the fibrous mineral for use in certain products throughout the United States; Whereas asbestos-related diseases have killed thousands of people in the United States; Whereas exposure to asbestos continues, but safety and prevention of asbestos exposure already has significantly reduced the incidence of asbestos-related diseases and can further reduce the incidence of such diseases; Whereas asbestos has been a cause of occupational cancer; Whereas thousands of workers in the United States face significant asbestos exposure; Whereas thousands of people in the United States die from asbestos-related diseases every year; Whereas a significant percentage of all asbestos-related disease victims were exposed to asbestos on naval ships and in shipyards; Whereas asbestos was used in the construction of a significant number of office buildings and public facilities built before 1975; Whereas people in the small community of Libby, Montana, suffer from asbestos-related diseases, including mesothelioma, at a significantly higher rate than people in the United States as a whole; and Whereas the establishment of a `National Asbestos Awareness Week' would raise public awareness about the prevalence of asbestos-related diseases and the dangers of asbestos exposure: Now, therefore, be it Resolved, That the Senate -1) designates the first week of April 2013 as ‘National Asbestos Awareness Week’; 2) urges the Surgeon General to warn and educate people about the public health issue of asbestos exposure, which may be hazardous to their health; and 3) respectfully requests the Secretary of the Senate to transmit a copy of this resolution to the Office of Surgeon General. The Asbestos Disease Awareness Organization 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · www.adao.us


2013 Asbestos Disease Awareness Organization Conference Awards & Recognition Dinner

Saturday, March 23, 2013 • 6:30 pm - 9:00 pm

The evening will include a performance by Jordan Zevon, tributes to several tireless advocates for asbestos victims, and recognition of our generous conference sponsors.


2013 ADAO Awards and Special Recognition 2013 ADAO Asbestos Awareness Conference Honorees U.S. Representative Lois Capps will be presented with the Tribute of Hope Award for her steadfast commitment to public health and safety. Presenter: Dr. Richard Lemen Dr. Celeste Monforton will be recognized with the Dr. Irving Selikoff Lifetime Achievement Award in honor of her tireless dedication to increasing awareness about asbestos to eliminate diseases and her unending support of the Asbestos Disease Awareness Organization. Presenter: Dr. David Michaels, U.S. Assistant Secretary of Labor for Occupational Safety and Health Karen Banton will be presented with the Tribute of Inspiration Award for her untiring efforts to protect workers’ rights and seek justice for asbestos sufferers and their families. Presenter: Doug Larkin The International Association of Heat and Frost Insulators and Allied Workers will receive the Tribute of Unity Award for its relentless efforts, both nationally and internationally, to protect workers’ occupational safety and health. Presenter: Dr. Arthur Frank Rob Cagle, who tragically lost his battle with mesothelioma in 2011, will be recognized with the Alan Reinstein Award for his commitment to education, advocacy, and support to countless patients and families. Presenter: Linda Reinstein Mavis Nye, a mesothelioma patient, will be recognized with the Alan Reinstein Award for her commitment to education, advocacy, and support to countless patients and families. Presenter: Linda Reinstein 2013 ADAO Asbestos Awareness Conference Special Recognition Jordan Zevon, ADAO National Spokesperson Herman Hamilton, ADAO Executive Assistant The Rahe Family, 2013 Diamond Donor Platinum Sponsors Baron & Budd, P.C. Motley Rice LLC Simmons Law Firm, LLC

Silver Sponsors Early, Lucarelli, Sweeney & Strauss The Nemeroff Law Firm

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


2013 ADAO Special Recognition Herman Hamilton ADAO’s hardworking Executive Assistant, Herman Hamilton, truly enables us to realize our mission and vision. His dedication to ADAO is exceptional, especially in light of the fact that he has not personally lost a loved one from asbestos-related disease. Herman so firmly believes in the work we do, and he has been our most loyal volunteer since 2005. Herman is a heroic veteran, and he is very dedicated to his family. As an adept carpenter, he crafts beautiful wooden furniture for his daughters. As the Executive Assistant for ADAO, he not only works with Linda Reinstein on strategic planning and global ban asbestos efforts, but he also coordinates the venue, hotel reservations, and flight arrangements for each of our International Asbestos Awareness Conferences. Herman is a gifted writer, and he collaborates every month on the ADAO eNewsletter. Additionally, Herman has often visited Congressional offices with our team. He is an excellent spokesperson, well-versed in asbestos-related diseases, treatments, funding, and related legislation. His passion for politics has proved a great asset to ADAO. Outside of his many duties with ADAO, Herman has served on the Board of Directors for the Legal Aid Bureau of Maryland for the past 12 years and counting. Herman is usually unable to attend our conferences in spite of his endeavors to make each one successful. So, if you know Herman, and even if you don’t, post a message on Facebook or send him an email at Herman@asbestosdiseaseawareness.org and let him know how much he means to ADAO, asbestos disease victims, and caregivers. We, your ADAO family, love you, Herman. Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


The Asbestos Disease Awareness Organization sincerely thanks

The Rahe Family

for hosting the Patient and Family Private Lunch and Capitol Tour

in loving memory of Bob Rahe


PLATINUM SPONSORS

Asbestos Disease Awareness Organization sincerely thanks our official 2013 Sponsors for their steadfast commitment to the prevention of asbestos-related diseases through their generous donations.


2013 ADAO Sponsors •

PLATINUM SPONSORS •

SILVER SPONSORS • Early, Lucarelli, Sweeney & Strauss The Nemeroff Law Firm

ADAO does not make legal or medical referrals, nor do we endorse its corporate sponsors, their policies, products or services.


ADAO Conference Event Hosts Private Speaker Dinner Friday, March 22, 2013

Conference Lunch Host Saturday, March 23, 2013

Unity and Remembrance Brunch Host Sunday, March 24, 2013


2013 ADAO Partners

Environmental Information Association


KEYNOTE SPEAKER Captain Aubrey K. Miller, M.D., M.P.H. ADAO is delighted to welcome back Captain Aubrey K. Miller, M.D., M.P.H., Senior Medical Advisor, Office of the Director, National Institute of Environmental Health Sciences (NIEHS), National Institutes of Health (NIH). "Captain Aubrey Miller is a true champion for Public Health and a visionary in how Public Health can bring meaningful change to our lives through disease prevention and education. ADAO is indeed fortunate to have a Keynote speaker of such caliber this year," said Rear Admiral Richard A. Lemen, U.S. Assistant Surgeon General (ret). Dr. Miller is the EPA National Expert on Asbestos Issues and the Co-Chairman of National EPA Superfund Asbestos Technical Workgroup, as well as a member of the EPA national science policy council asbestos working group. “Dr. Miller has served with distinction in the U.S. Public Health Service and was the lead physician in looking at the health effects from Libby asbestos while assigned to work with the EPA,” said Dr. Arthur Frank, ADAO Science Advisory Board Co-Chair. “Now working at NIEHS, he continues to have a major interest in the matter of asbestos-related diseases, and often speaks with passion on this topic.” Dr. Miller played a leading role in the EPA’s response to the human tragedy that was created in Libby by the operations of the vermiculite mine owned by W. R. Grace. “Dr. Miller arrived in Libby in November of 1999 with the EPA/HHS response to the Libby Amphibole exposure and said he was here to help,” said Brad Black, Chief Executive Officer and Medical Director for the Center for Asbestos and Related Diseases in Libby, Montana. “Well, he did exactly as he had committed and, to this day (13 years later), continues to work on Libby’s behalf to help bring essential resources and research to the Libby Superfund Site. He has put a smiling face on the image of a Federal Agency by making people’s well-being a major goal of his job.” Dr. Miller’s current responsibilities include strategic planning and coordination of environmental health issues and activities, among HHS and other federal agencies, as well as supervisory oversight of the NIEHS office in Bethesda, MD. He has had extensive involvement in the Gulf Oil Spill response, providing testimonies before US Senate and House Committees on the health concerns of environmental exposures, and coordinating a variety of ongoing programmatic and research activities. Some of his other focus areas include hydraulic fracturing, disaster response, and emerging threats (e.g., Hurricane Sandy, H1N1 pandemic, anthrax attacks, Hurricane Katrina, and WTC response). Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


Keynote Speaker and Tribute of Inspiration Honoree Karen Banton Karen Banton is a strong advocate on behalf of asbestos disease sufferers and their families, fervently continuing the legacy left by her late husband Bernie Banton AM. Bernie was widely recognized as the public face of the legal and political campaign fought in Australia from the early 2000s until 2007 to achieve a binding agreement with James Hardie Industries for a long-term compensation fund for the many sufferers of asbestos-related diseases who were exposed to the company’s products containing asbestos. During those all-consuming years, behind the scenes, Karen very much “walked the walk” with Bernie. She was every bit as passionate for the cause, and even more so with his passing in November 2007. In Australia, she has now become the public face for this mission and the ongoing fight for justice. Bernie and Karen’s heartbreaking and heroic story is powerfully told in the 2012 Australian TV miniseries “Devil’s Dust.” Karen cared for Bernie as he suffered pleural plaques, asbestos-related pleural disease, asbestosis, and mesothelioma. Her comprehensive understanding of how these diseases adversely affect sufferers and their families is evident in the compassionate manner in which she deals with all who are touched by these insidious conditions. In 2009, Karen, along with a number of supporters, founded the Bernie Banton Foundation to provide support and information to asbestos-related disease sufferers and their families and facilitate community awareness of asbestos and its dangers. “I know Bernie would be so pleased for me to be receiving this award,” said Karen, “as he felt very strongly that I deserved to share equally in all the accolades he received. To quote Bernie: ‘Ultimately, good will always triumph over evil. We are not victims, we are victors.’” Karen is committed to preventing further exposures to deadly asbestos and materials containing asbestos, so any contribution she is able to make in raising awareness and educating the general public, particularly youth, is paramount to her. She feels strong compassion toward those touched by asbestosrelated diseases and she considers it an honor to be able to offer peer-based support to affected families. Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


The Asbestos Disease Awareness Organization

2005 – 2013 Honorees 2013 ADAO Asbestos Awareness Conference Honorees – Washington, D.C. U.S. Representative Lois Capps (D-CA), Tribute of Hope Award Dr. Celeste Monforton, Dr. Selikoff Lifetime Achievement Award International Association of Heat and Frost Insulators and Allied Workers, Tribute of Unity Award Karen Banton, Tribute of Inspiration Award Rob Cagle, Alan Reinstein Award Mavis Nye, Alan Reinstein Award 2012 ADAO Asbestos Awareness Conference Honorees – Manhattan Beach, CA U.S. Representative Steve Cohen (D-TN), Tribute of Hope Award Actor Steve McQueen, Warren Zevon "Keep me in Your Heart" Award Dr. Arthur Frank, Dr. Selikoff Lifetime Achievement Award Dr. Richard Lemen, Dr. Selikoff Lifetime Achievement Award Joel Shufro, Tribute of Inspiration Award Associazione Familiari Vittime Amianto (AFEVA), Tribute of Unity Award Debbie Brewer, Alan Reinstein Award Larry Davis, Alan Reinstein Award 2011 ADAO Asbestos Awareness Conference Honorees – Atlanta, GA The Honorable Max Baucus, United States Senator, Tribute of Hope Award Dr. Guadalupe Aguilar Madrid, Dr. Selikoff Lifetime Achievement Award Environmental Information Association, Tribute of Unity Award Sugio Furuya, Tribute of Inspiration Award Ron Cyrus, Warren Zevon "Keep me in Your Heart" Award Julie Gundlach, Alan Reinstein Award 2010 ADAO Asbestos Awareness Conference Honorees – Chicago, IL The Honorable Richard Durbin, United States Senator, Tribute of Hope Award Center of Asbestos Related Disease (CARD), Tribute of Unity Award Dr. Hedy Kindler, Dr. Selikoff Lifetime Achievement Award Fernanda Ginnasi, Tribute of Inspiration Award Army Archerd, Warren Zevon "Keep me in Your Heart" Tribute Memorial Award June Briet, honored posthumously, Alan Reinstein Memorial Award

Asbestos Disease Awareness Organization is a registered 501(c)(3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.251.7477 www.AsbestosDiseaseAwareness.org


The Asbestos Disease Awareness Organization

2005 – 2013 Honorees 2009 ADAO Asbestos Awareness Conference Honorees – Manhattan Beach, CA The Honorable Barbara Boxer, United States Senator, Tribute of Hope Dr. Stephen Levin, Dr. Selikoff Lifetime Achievement Award Peg Seminario, AFL/CIO, Tribute of Unity Award Pralhad Malvadkar and Raghunath Manwar, Tribute of Inspiration Award Dominick Marzicola, honored posthumously, Alan Reinstein Memorial Award 2008 ADAO Asbestos Awareness Conference Honorees – Detroit, MI Dr. Aubrey Miller, Tribute of Hope Barry Castleman, Dr. Selikoff Lifetime Achievement Award Canadian Auto Workers, Tribute of Unity Award John Thayer, Former US Capitol Tunnel Worker Supervisor and Asbestos Victim, Tribute of Inspiration Award John McNamara, honored posthumously, Alan Reinstein Memorial Award 2007 ADAO Asbestos Awareness Conference Honorees – Philadelphia, PA The Honorable Patty Murray, United States Senator, Tribute of Hope Dr. Michael Harbut, Dr. Selikoff Lifetime Achievement Award Patrick Martin, Member of Canadian Parliament, Tribute of Unity Award Paul Zygielbaum and Michelle Zygielbaum, Activists, Tribute of Inspiration Award Les Skramstad, honored posthumously, Alan Reinstein Memorial Award 2006 ADAO Asbestos Awareness Conference Day Honorees – New York City, NY The Honorable Harry Reid, United States Senator, Tribute of Hope Award The Honorable Chuck Strahl, Member of Parliament, Canada, Tribute of Inspiration Paul Brodeur, Dr. Selikoff Lifetime Achievement Award Dr. Yasunosuke Suzuki, Selikoff Lifetime Achievement Award James Fite, Tribute of Unity Award 2005 ADAO Asbestos Awareness Conference Honorees – Washington, DC Laurie Kazan-Allen, Tribute of Unity Award Gayla Benefield, Tribute of Hope Award Jill Vaughn, Tribute of Inspiration Award

Asbestos Disease Awareness Organization is a registered 501(c)(3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.251.7477 www.AsbestosDiseaseAwareness.org


Tribute of Hope Award U.S. Congresswoman Lois Capps Congresswoman Lois Capps understands the importance of public health firsthand -from the perspective of a nurse caring for patients. For twenty years, she was a nurse and public health advocate for the Santa Barbara School District. Now, she brings that leadership and passion for quality healthcare, better schools and a cleaner environment to the U.S. Congress. ADAO is proud to present the Congresswoman with the Tribute of Hope Award for her support to victims of asbestos disease. She has been instrumental in helping ADAO spread awareness of the dangers of asbestos and the importance of preventing exposure. We are grateful to her for making it possible for ADAO to hold informational briefings with House staffers, saving lives through education and prevention. Congresswoman Lois Capps has been a resident of Santa Barbara, California since 1963 and represents the State’s Central Coast. She was sworn in as a member of the 105th Congress on March 17, 1998, succeeding her late husband, former University of California, Santa Barbara professor, Congressman Walter H. Capps. Congresswoman Capps has successfully spearheaded and passed legislation specifically to: address the national nursing shortage, detect and prevent domestic violence against women, curb underage drinking, improve mental health services, provide emergency defibrillators to local communities, bring CPR instruction to schools, and improve Medicare coverage for patients suffering from Lou Gehrig’s disease. Capps serves on the powerful Committee on Energy and Commerce. She also sits on the Health, Energy & Power, and Environment & the Economy subcommittees. From these posts, Capps focuses on Medicare reform, the nursing shortage, cancer, mental health, energy policy, and the protection of our air and water. Capps’ extensive healthcare background informs her work in Congress; she founded and serves as the cochair of the House Nursing Caucus. She also serves as co-chair of the Congressional Heart and Stroke Coalition, the House Cancer Caucus, the Congressional School Health and Safety Caucus, National Marine Sanctuary Caucus, and the Sustainable Energy and Environment Coalition. “ADAO is thrilled to be able to work with Congresswoman Capps,” said ADAO Co-Founder Linda Reinstein. “She sincerely cares about Americans’ health and has opened the door for us to increase awareness and work towards prevention and a cure for asbestos-related disease. I am honored to have this opportunity to recognize her.” Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


Dr. Irving Selikoff Lifetime Achievement Award

Celeste Monforton, DrPH, MPH ADAO is proud to announce that Celeste Monforton, DrPH, MPH, a professorial lecturer in the Department of Environmental and Occupational Health at the George Washington University’s School of Public Health and Health Services, will be presented with the Dr. Irving Selikoff Lifetime Achievement Award. We are grateful that she has offered her extensive knowledge and dedication to support ADAO’s efforts to help prevent asbestos exposure. “Dr. Celeste Monforton has been a tireless advocate for that basic human right of all workers to a safe workplace,” said David Michaels, PhD, MPH, Assistant Secretary of Labor for Occupational Safety and Health. “With powerful writing, scientific rigor and a huge heart, she has helped workers across the country raise their voice to demand better, safer jobs. I know of no one more deserving of the Dr. Irving Selikoff Lifetime Achievement Award than Celeste Monforton.” In 2012, Dr. Monforton joined forces with ADAO and the Houston, Texas worker center Fe y Justicia to raise awareness and respond to employer behavior that exposed unknowing construction workers to asbestos. Workers were told to saw through water mains without any protection from the asbestos concrete that they were disturbing. “I’m scared,” said Luis Matute, one of the workers exposed to asbestos in Houston who spoke with the local news station. Dr. Monforton has dedicated her career to helping people like Mr. Matute, so that we are no longer scared, but instead protected and safe from exposure to toxins like asbestos, no matter where we work. Dr. Monforton served on the special panel appointed by the West Virginia Governor to investigate the January 2006 Sago coal mine disaster that took the lives of 12 workers and she served on the special panel investigating the April 2010 disaster at Massey Energy’s Upper Big Branch mine that killed 29 workers. Dr. Monforton’s research includes assessment of worker health and safety laws and policies and their effectiveness in protecting workers from illnesses, disability and death. She has published articles on strategies used by economic interests to manipulate scientific evidence to create uncertainty about health risks in order to delay protective regulatory action. Prior to her academic appointment, Dr. Monforton was a federal employee at the U.S. Department of Labor’s Occupational Safety and Health Administration (OSHA, 19911995) and Mine Safety and Health Administration (MSHA, 1996-2001). Dr. Monforton is an active member of the American Public Health Association, and she has served in a leadership position with the organization’s Occupational Health and Safety Section. Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


Tribute of Unity Award International Association of Heat and Frost Insulators and Allied Workers (IAHFIAW) “If we don’t lead the charge in finding a cure for mesothelioma and other asbestos diseases, then who will?” James A. Grogan, General President of the International Association of Heat and Frost Insulators and Allied Workers (IAHFIAW), asked his convention delegates. The IAHFIAW, or Insulators Union, is one of 14 International Unions under the Building and Constructions Trades Department of the AFL-CIO. ADAO is proud to honor the IAHFIAW with the Tribute of Unity Award. Last July, under President Grogan’s leadership, Union members declared war on mesothelioma, committing to allocate four cents for every hour they work to find a cure for mesothelioma and other asbestos-related diseases. The Union has just established the Insulators Tissue Bank and is looking for other ways to improve the health of their membership. The IAHFIAW launched the Insulators Tissue Bank in order to overcome the chronic problem of insufficient tissue from asbestos-related disease being available to mesothelioma and lung cancer researchers. These researchers are trying to discover the factors, both genetic and non-genetic, that influence who falls ill after exposure. They are also trying to develop improved approaches to early detection and improved treatments. President Grogan and his members have exhibited a passion for finding a cure for mesothelioma and other asbestosrelated diseases, which have so decimated insulators and their families for generations. He has worked closely with Dr. Irving Selikoff, who first discovered the connection between asbestos and mesothelioma. It was the asbestos workers members from President Grogan’s Union that Dr. Selikoff first studied and treated in Patterson, New Jersey. President Grogan is also extremely proud of his dear friendship with another asbestos disease pioneer, the late Dr. Steven Levin. “ADAO greatly admires the Insulators’ resilience in the face of the unjust burden of mesothelioma and lung cancer suffered by their members,” said ADAO Co-Founder Linda Reinstein. “The Insulators Union has the technology, labor, years of expertise and training programs to provide North America with asbestos-disease prevention in the form of abatement that the United States and Canada need.” Under President Grogan’s leadership, the Union continues to work with doctors, researchers, attorneys and non-profit organizations like ADAO. We are very grateful for the Insulators’ dedication to prevention and fighting asbestos-related disease.

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


Alan Reinstein Memorial Award

Rob Cagle “It’s all good.” Rob Cagle was famous for saying that, encouraging others, even when times were hard. He was born on July 22, 1965, and died of mesothelioma on September 11, 2011. ADAO is proud to honor Rob with the Alan Reinstein Award for his commitment to education, advocacy, and support to patients and families impacted by asbestos-related diseases. Rob’s wife, Jill, is accepting the award in his memory. Jill has carried on Rob’s commitment to helping others through the Ridin’ the Wind with Rob motorcycle ride, raising awareness and funds for ADAO and other non-profits. Jill is proud that she and Rob are part of something that is really making a difference in the lives of asbestos victims and she emphasizes that coming to the ADAO conference is important in order to speak to other Meso Warriors about their stories and to learn more and more. We are grateful to Jill for sharing precious memories of Rob. “There are so many things that I would like to say about this wonderful man, but there is just not enough room,” Jill said. “He was my Soul Mate: a very dedicated and loving husband, friend, father, son, brother and most recently, a grandfather. He absolutely loved to fish, ride his Harley and play golf. Rob could tell a story like no one else I know. He was such a people person and never met a stranger. He had a smile and one of those personalities that just lit up a room.” Rob loved lending a helping hand. In fact, the night before he was placed in hospice care, he was DJing for a benefit. The courage that he displayed through six years of mesothelioma and too many chemo treatments to count was a powerful example for others and a true testament to his life. Encouraging others until the end, he affected and infected so many people’s lives. Rob was an advocate for fighting this disease and advocating a total ban of asbestos. “Jill said something that really struck a powerful chord with me,” said ADAO Co-Founder Linda Reinstein. “She said that the disease took Rob’s life, but it never, never took his spirit and passion for living. He never gave up. That reminded me so much of my husband Alan. I know he would be thrilled for Rob to receive this award in his name in recognition of Jill and Rob’s fight for a ban, prevention and research towards a cure.” “I believe he would want to say to those battling this nasty disease: ‘Don’t Give Up! Live Every Day! Love with Your Whole Heart! Keep Fighting for a Ban and a Cure!’ adds Jill. “And, as only he could say… It’s All Good! Rob, you will be missed more than words can describe.” Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


Alan Reinstein Memorial Award

Mavis Nye Mavis Nye’s son didn’t realize what a powerful voice his Mum has. When he heard her speak about her battle as a Mesothelioma Warrior, he was so proud that he was moved to tears. ADAO is also proud to pay tribute to Mavis with the Alan Reinstein Award for her commitment to education, advocacy, and support to patients and families impacted by asbestos-related diseases. “Mavis is exactly the kind of person my husband Alan and I would have loved to have in our lives when he was diagnosed with mesothelioma,” said ADAO Co-Founder Linda Reinstein. “I know Alan would be delighted to have her receive this award in his name. She is compassionate and, beyond that, she turns anger into action. I am honored that she is part of our ADAO community.” Mavis’s commitment to asbestos disease awareness extends from her home in the U.K. to countries around the world through her Meso Warrior Facebook connections. This year, she won the IATP Meso Warrior Award for offering advice and help to newly diagnosed patients. Mavis’s many accomplishments include talking with doctors about patients’ needs as a National Health Services Patient Representative; giving interviews for TV, magazines, and newspapers; and joining with other Meso Warriors to put pressure on Canada to close their asbestos mine – which they did in 2012! Mavis is the author of a book entitled “Meso Warrior” and has lent her voice to the British Lung Foundation’s education campaigns. “At the moment,” adds Mavis, “I’m in a fight to help residents of a housing estate where an asbestos company is collecting asbestos waste to store within 100 feet of the residence. I couldn’t stand back and not help as I used to live in the area and know it well. A children’s playing area is right there as well. Not okay!” Mavis believes that Meso Warriors’ health and prognosis would be greatly improved by more cooperation among doctors throughout Europe. Her friends from all over the world share their experiences through Facebook -- not just moral support, but treatment ideas, too. Mavis advocates that clinical trials should be shared internationally, and doctors should train each other in complicated mesothelioma surgical techniques. Mavis gives speeches to medical staff, telling them about her experiences as a mesothelioma patient. When she was diagnosed in 2008, she was given three to six months to live. “A lot of doctors haven't seen a patient live so long with the disease,” she says. “I have survived three chemo lines and a clinical trial, so I’m teaching them.”

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


H r u o Y

By Warren Zevon

p e Ke

n I Me

t r ea

Shadows are falling and I'm running out of breath

You know I'm tied to you like the buttons on your blouse

Keep me in your heart for awhile

Keep me in your heart for while

If I leave you it doesn't mean I love you any less

Hold me in your thoughts, take me to your dreams

Keep me in your heart for awhile

Touch me as I fall into view

When you get up in the morning and you see that crazy sun

When the winter comes keep the fires lit

Keep me in your heart for while

And I will be right next to you

There's a train leaving nightly called when all is

Engine driver's headed north to Pleasant Stream

said and done

Keep me in your heart for while

Keep me in your heart for while

These wheels keep turning but they're running

Sha-la-la-la-la-la-la-li-li-lo

out of steam

Keep me in your heart for while

Keep me in your heart for while

Sha-la-la-la-la-la-la-li-li-lo

Sha-la-la-la-la-la-la-li-li-lo

Keep me in your heart for while

Keep me in your heart for while

Sometimes when you're doing simple things

Sha-la-la-la-la-la-la-li-li-lo

around the house

Keep me in your heart for while

Maybe you'll think of me and smile

Keep me in your heart for while

Lyrics reprinted with permission. Š 2003 Zevon Music (BMI) / Googolplex Music (BMI)


Steve McQueen

Photographer Dave Friedman

1930-1980

A letter to S Steve teve I think about y much unfinishe ou every day. We still have d h Meso stole y business, even after all th ave so ou es many others. r life, our life together a e years. nd A world will cha DAO and an educated, co too nge this very n soon......Love cerned , Barbi


RON CYRUS

“ My dad was everything to me and most of all he was my best friend. His character, trustworthiness and dedication made him a wonderful role model. If only money could bring better health, he would be with us today. I support ADAO and their efforts to ban asbestos. We all must work together in this fight. ADAO has my continued support in making everyone aware of this deadly disease.” — Billy Ray Cyrus


s a l u t e s f r i e n d

o u r

a n d

b e l o v e d

c o l l e a g u e

Army Archerd o n

r e c e i v i n g

the Warren Zevon “Keep me in Your Heart � Memorial Tribute and the ADAO for their continued e f f ort s i n r a i s i n g p u b l ic awa r e n e s s on the dangers of asbestos e xposure

IN MEMORIAM


In Loving Memory of Alan Reinstein 1939 – 2006

Unforgettable Husband and Father Sweetly, we remember how you lived your life so deeply and without regrets. You loved us unconditionally. The broken shards of the past six years soften amongst 25 years of bliss and have become a cherished mosaic of memories. Our love for you is forever etched across our hearts, and we feel your love.

Love,

Linda and Emily


Bill Shields 1943-2004

Husband, Father, Friend

You are never forgotten and you were an inspiration in founding ADAO – so that all victims may have a voice. Your spirit still soars on the wings of a seagull, and our memories will always keep you alive in our hearts, minds and souls forever. From your loving family and friends


Bob Rahe Bob is best remembered by those that knew him for his sense of humor, love for his son, and passion for sports - most especially horseracing. Bob had an unwavering strength and determination that was largely responsible for allowing him to maneuver his nearly 11 year battle with Mesothelioma.

Bob's family and friends are proud to sponsor this event in his memory. We look forward to continuing to support the important work of the Asbestos Disease Awareness Organization.

The Rahe Family


IN LOVING MEMORY JEFFREY FARNSWORTH 1946 - 2003

 Always Remembering Our YESTERDAYS & Missing Our TOMORROWS.

We love you and miss you so very much. Love, Your Girls


♥ Rob Cagle ♥

February 2010, Kauai luau

When I remember Rob, I smile instead of cry-- he would have liked that. I miss him terribly, but that's nothing compared to the friendship and laughter that he added to our lives. Even fighting mesothelioma together, we laughed and joked and celebrated life. Robbie was an amazing man and always a reminder to seize life every day. He is gone too soon. Love you Robbie! Julie Gundlach and Dan and Madeline Young


Robbie Cagle   Meso  Warrior   July  22,  1965  –  September  11,  2011  

There are so many things that I would like to say about this wonderful man but there is just not enough room. He was my Soul Mate: a very dedicated and loving husband, friend, father, son, brother and most recently a grandfather. He absolutely loved to fish, ride his Harley and play golf. Rob could tell a story like no one else I know. He was such a people person and never met a stranger. He had a smile and one of those personalities that just lit up a room. Loved lending a helping hand. In fact, the night before he was placed in hospice care, he was DJing for a benefit. The courage that he displayed through 6 years of mesothelioma and too many chemo treatments to count, was such an awesome example for others and a true testament to his life. Encouraging others till the end he affected and infected so many people’s lives. Rob was an advocate for fighting this disease and the total ban of asbestos. This disease took his life but it never ever took his spirit and passion for living. He never gave up. I believe he would want to say to those battling this nasty disease:

Don’t give up!! Live Every Day!! Love with your whole heart!! Keep fighting for a ban and a cure!! and as only he could say...

“It’s All Good!!!" Rob, You will be missed more than words can describe. See you in heaven. Love, Jill


Stan “Swede” Grimberg Union Plumber Local 290/Oregon Mesothelioma Warrior

April 18, 1929 - June 6, 1982

“You are on my shoulder, encouraging me always to move forward, look ahead, work hard, and make the best of what I’m given. I will tell your story Dad, so that other tradesmen and women will not suffer, and their sons and daughters will not lose their parents to deadly asbestos. By volunteering with ADAO I honor you, your fighting spirit, and the injustice our family has endured.” Love you, always and forever your daughter,

n n A


Asbestos Awareness Week Candlelight Vigil

April 7, 2013

April 1, 2013

Light a candle in Unity, Hope & Remembrance

Please join ADAO for our annual worldwide candlelight vigil in honor and memory of those who have died from asbestos exposure, to support the families and friends who are grieving, and to find strength from those whose mission is to have a world free of asbestos.

ADAO will light five candles to Remind us of love Give us courage

Heal our grief Honor our memories

Strengthen our pledge to continue


In Loving Memory of

Stephen M. Levin, MD Stephen M. Levin Foundation stephenmlevin.com To honor Steve Levin, and to help further the work about which he cared so deeply, a scholarship for medical residents specializing in occupational health has been created in his name. To donate to the memorial fund, checks may be made out to the “Stephen M. Levin Foundation� and mailed to: Stephen M. Levin Foundation 459 South Broadway / Upper Grandview, NY 10960


THE INTERNATIONAL ASSOCIATION OF HEAT AND FROST INSULATORS AND ALLIED WORKERS Is proud to support the efforts of

The ADAO on the occasion of their 9th Annual Asbestos Awareness Conference and in their relentless pursuit to elevate awareness on Asbestos exposure, the dangers, prevention and treatment.

JAMES A. GROGAN

JAMES P. McCOURT

General President

General Secretary-Treasurer

INTERNATIONAL VICE PRESIDENTS William Mahoney Kenneth Schneider Fred DeMartino Terry Lynch Doug Gamble Terry Larkin Greg Revard Mark Selby Vince Engel

INTERNATIONAL REPRESENTATIVES Robert Hall

Eugene Leclerc

Tom Haun

Affiliated with the AFL-CIO, Building and Construction Trades Department, Metal Trades Department and Canadian Labour Congress


Baron & Budd is proud to support ADAO’s efforts to ban asbestos and find a cure for mesothelioma .

Enhanced Image of Anthophyllite by Theodore W. Gray, Copyright

Platinum 2013 Sponsor

© 2010

P rot ect ing W h at ’ s R ight®


Dear Linda and Doug: We are honored to support ADAO. Asbestos is so much bigger than just one person or one lawsuit. Your work has helped many people around the globe and gives hope to those whose lives have been harmed by asbestos. Thank you so much for standing up and making the voices of asbestos victims heard. What you do truly makes the world a better place. Keep fighting the good fight.

R u ssell W. B u d d

C a l l f o r a f r e e l e g a l c o n s u l t a t i o n . 1 . 8 6 6 . 8 5 5 .12 2 9

facebook.com/Fight.Mesothelioma

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w w w. m e s o t h e l i o m a n e w s . c o m

Dallas, TX (main office), Los Angeles, CA, Austin, TX, Baton Rouge, LA


the nemeroff law firm and its mesothelioma clients wish to thank ADAO for its tireless work on behalf of the victims of mesothelioma, and for the support they provide to their families.

www.MesotheliomaMedicalFacts.com www.NemeroffLaw.com

HOUSTON

55 WAUGH DRIVE SUITE 850 HOUSTON, TX 77007 281-378-5970

DALLAS

2626 COLE AVE. SUITE 450 DALLAS, TX 75204 214-774-2258

PITTSBURGH

600 GRANT STREET SUITE 660 PITTSBURGH, PA 15219 214-774-2289

NEW ORLEANS

201 ST. CHARLES AVENUE SUITE 2500 NEW ORLEANS, LA 70170 504-754-6886


Congratulations to

Mavis Nye 2013 Alan Reinstein Award Honoree for her commitment to education, advocacy, and support to countless patients and families around the world

Presented on January 26, 2013 in the United Kingdom


Thank you for giving me my voice.

The Asbestos Disease Awareness Organization has been important in our lives as we work together to prevent exposure and fund research for a cure.

Congratulations to all of the 2013 Conference Honorees on their well-deserved awards!

Heather Von St James: Heather’s Hope Blog http://www.mesothelioma.com/blog/authors/heather/Â


I was so proud to receive The Alan Reinstein award last year at the ADAO conference. Not only that it recognized the work I and many others do with social media and support with mesothelioma but that it was something so special and so close to Linda Reinstein's heart. This year I was so pleased to see that the 2013 award is being awarded to Mavis Nye, a tireless campaigner and supporter who spends much of her time giving mesothelioma a voice. Congratulations Mavis, a welldeserved recognition of all you do. Linda and Doug, I have no doubt your conference will be as good, if not better than last year. I am so happy to be associated with ADAO. Awareness is an important part of changing the world. I hope in my life time I see a worldwide asbestos ban. Love,

Debbie Brewer


Congratulations!! From Jill “^j^illypooo” Vaughn To ADAO, Linda Reinstein, Doug Larkin and all volunteers who make this conference a success. As a Meso survivor, a phone volunteer at MDAnderson Network and Bloc Cancer Center for over 20 years, I have had the wonderful opportunity to meet many Meso families. The Mesothelioma Listserv on ACOR’s website has also been a great source of information, support and meeting of lasting relationships from sharing in the War on Meso. My husband Bud and I would like to honor the Caregivers and Meso Warriors who are fighting. And, to the memory of those Meso friends that have gone on before us …

"Another songbird falls silent on Earth, And in the heavens another star Blinks into existence In the evening skies To help light the way for the rest of us."

http://bit.ly/AztM5d


Leading the Fight for Safe and Healthy Workplaces!    

The National Council for Occupational Safety and Health commends

The Asbestos Disease Awareness Organization and

Dr. Celeste Monforton for their outstanding work in protecting workers from exposure to asbestos on the job.

THANK YOU FOR ALL YOU DO! National Council for Occupational Safety and Health 112 S. Blount Street, Suite 103A Raleigh, NC 27601  (919) 428-6915 2845 W. 7th Street, Room 206 Los Angeles, CA 90005  (213) 278-6035 www.coshnetwork.org  coshnatl@gmail.com


Congratulations, Celeste Monforton!

Your Activism, Mentoring, Giving, Â Planning, Plotting, Thespianing, Researching, Blogging, Marching, Teaching, Protesting, Writing and LOVING is making this a better world!

With grateful appreciation from your friends and colleagues at: The APHA OHS Section National COSH Protecting Workers Alliance IWJ Workers Centers USMWF


The Marriott is pleased to congratulate‌ The Asbestos Disease Awareness Organization on their 9th Annual Asbestos Awareness Conference in Washington, D.C. We are proud to support the Asbestos Disease Awareness Organization's efforts since 2005 and look forward to our continued partnership!


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The Asbestos Disease Awareness Organization thanks

Barbara Minty McQueen for her commitment to ADAO, support on the Hill, and generous donation of autographed copies of her beautiful photographic memoir Steve McQueen:

The Last Mile Revisited.

Visit www.barbaramintymcqueen.com to view photos of Barbara with her late husband Steve McQueen and order copies of her book.


Thanks to ANDEVA

The Asbestos Disease Awareness Organization sincerely thanks the French National Association of Asbestos Victims (ANDEVA) for inviting us to participate in their landmark “International Day for Asbestos Victims” conference and “A World without Asbestos” demonstration in Paris


The Asbestos Disease Awareness Organization is thrilled to launch our new iPhone mobile app! New ne o h P i ! App

The Asbestos Disease Awareness Organization is thrilled to launch our new iPhone mobile app, which will better enable us to connect and share to prevent asbestos exposure to eliminate asbestos caused diseases. www.asbestosdiseaseawareness.org


Demonstrating Auditing and Regulatory Requirements for

INDEPENDENT ASBESTOS TRAINING PROVIDERS In support of ADAO’s initiative of the Global Asbestos Awareness Week on April 1–7, 2013 Independent Asbestos Training Providers (IATP) www.iatp.org.uk


The Asbestos Disease Awareness Organization thanks each person who speaks up and out against asbestos.

“Asbestos is deadly. It does not think, it just kills.” Michael, Mesothelioma Patient, age 28

“Facebook is really such a powerful tool when it comes to spreading a message. Any type of message. So many people see/read what you have to say. That is why I use it to spread the news about the dangers of asbestos. This so called miracle mineral gets into your body and does not show its self for years. Not only am I fighting asbestos related cancer, but I am putting myself on the frontline in the battle against the mining and use of asbestos.” ~ Michael Follow Michael online at http://michaelsmiracleinthemaking.webs.com/ Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


Our Message of Hope. If the world unites in 2013, we can offer hope that one day we will have a cure for Mesothelioma. First we must agree to stop production from all the Asbestos Mines. Then we must remove all existing trace of Asbestos in our homes and workplaces and in our Schools. This will start to protect the future generations.


ENVIRONMENTAL INFORMATION ASSOCIATION The Association’s multi-disciplinary membership will collect, generate and disseminate information concerning environmental health hazards to occupants of buildings, industrial sites and other facility operations.

EIA Salutes the work of the ADAO And we wish you the best of luck in your 2013 endeavors. We appreciate the partnership between our organizations, and look forward to working together to bring an end to the needless dangers of asbestos exposure.

The Environmental Information Association, with its beginnings as the National Asbestos Council, has spent almost 30 years at the forefront in providing the environmental industry with the information needed to remain knowledgeable, responsible, and competitive in the environmental health and safety industry.

EIA is holding its 30th Anniversary Conference, March 24-27, 2013 at the Hyatt Regency Crystal City. The EIA National Conference is the best source of technical information for Environmental Health and Safety Professionals, in the areas of Asbestos, Lead, IAQ, Mold and EMS/ESA. ENVIRONMENTAL INFORMATION ASSOCIATION 6935 Wisconsin Avenue, Suite 306 Chevy Chase, MD 20815 www.eia-usa.org Phone: 888-343-4342 Fax: 301-961-3094 Email: info@eia-usa.org


NEW YORK COMMITTEE FOR OCCUPATIONAL SAFETY & HEALTH

In Appreciation for ADAO’s Shared Commitment to Protecting the Safety of Workers In solidarity, New York Committee for Occupational Health & Safety (NYCOSH) 116 John Street - Suite 604 New York, NY 10038 212-227-6440

www.nycosh.org


CURE magazine salutes the ADAO for their continued efforts on behalf of patients, survivors and caregivers.

Order your FREE copy of CURE magazine’s Understanding Mesothelioma—a comprehensive resource for patients and caregivers who are seeking information on mesothelioma. Featuring information on: > Causes of mesothelioma > Symptoms and diagnosis > Information on finding a specialist

> Treatment options > Side effects > Coping strategies > Legal issues

> Legislation > Caregiving > and more!

Visit curetoday.com/shop to order your free copy today! CURE is a FREE quarterly magazine that combines science with humanity to empower cancer patients and their caregivers with the latest information on every aspect of cancer—from the technical and the scientific, to the social and the emotional.

cure media group In print, in person and online, CURE makes cancer understandable curetoday.com


The only two ways to end asbestos-caused diseases are prevention and a cure

www.AsbestosDiseaseAwareness.org


With gratitude to Asbestos Disease Awareness Organization for its national and global efforts in advocacy, community, and education!

In unity and solidarity, ZeelTV www.zeeltv.com


cooking is love Keeping Families Together

– A Recipe for Life – Start with a loaf of HOPE Add a dash of RESILIENCE Season with a pinch of ENDURANCE To live with the challenges of an asbestos-related disease Sprinkle liberally with DETERMINATION And a handful of SPIRIT Cover with COURAGE And always serve on a bed of FAITH Nestled in a platter of LOVE * Poem courtesy of the Center for Asbestos Related Disease

To receive a copy of our new cookbook, please contact info@asbestosdiseaseawareness.org


SHARED HOW ASBESTOS CHANGED OUR LIVES

STORIES

asbestosdiseaseawareness.org

The Asbestos Disease Awareness Organization is pleased to present our new book of over 70 Share Your Story submissions at the Unity and Remembrance Brunch on Sunday, March 24. This

book,

entitled

“Shared

Stories:

How

Asbestos Changed Our Lives,” honors the courageous

fight

of

those

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CONGRATULATES

On the running of the: th

9 Annual International ADAO Asbestos Awareness Conference In unity, two organizations borne from the grief of losing loved ones to the horror, that is ASBESTOS

Support - Awareness - Advocacy “The fight will not stop, until the battle is won� Bernie Banton Foundation Contact: Karen Banton CEO Email: info@berniebanton.com.au Mob: +61 412 830 485 Web: www.berniebanton.com.au Postal: PO Box 98 Rod Smith Tyabb Victoria 3913 Operations Manager Australia Mob: +61 418 319 757


GBAN GLOBALBAN ASBESTOSNETW ORK COMMUNI CATI ON. COLLABORATI ON. ACTI ON s oci almedi acommuni t y

The Gl obalBan As bes t os Net wor k( GBAN) Soci alMedi a Communi t yi s a nonpr oďŹ t an i ndependenti ni t i at i ve es t abl i s hed t o pr omot e and f aci l i t at e col l abor at i on, communi cat i on, and act i on t o achi eve a gl obalas bes t osban. GBAN i saones t oppor t alt hatbr i ngst oget her i nt er act i ves oci almedi aout l et st o pr omot ean end t o as bes t osmi ni ng and us e,t her ebypr event i ng cont i nued expos ur et o t hi s known humancar ci nogen.

www. gban. net www. f acebook. com/gbanAs bes t os


APRIL 1-7


Asbestos: One Word. One World. One Week. Mark your calendar now to check in with ADAO every day on April 1-7, 2013 for Global Asbestos Awareness Week. Join together with us to spread the word about this deadly carcinogen. Each day will focus on a different subject for you to read and share. Sharing is powerful: knowing how to prevent asbestos exposure saves lives! April 1: Open with Candlelight Vigil and 7 Reasons for 7 Days by Linda Reinstein, ADAO Co-Founder. Read and share our motivation for spreading awareness about deadly asbestos. Prevention is the only cure. April 2: Dr. Richard Lemen, “Asbestos: What is It?” ADAO Scientific Advisory Board Co-Chair explains where asbestos is found and who might be in danger of being exposed. April 3: Dr. Arthur Frank, “Why is Asbestos Bad for My Health?” ADAO Scientific Advisory Board Co-Chair shares information about what you should do if you are diagnosed with an asbestos-related disease. April 4: Share Your Story. You are not alone. Join our ADAO “Share Your Story” community about how you or your loved one has been affected by an asbestos-caused disease such as mesothelioma, lung cancer, and asbestosis. April 5: A Statement from the U.S. Surgeon General. “If you think you have been exposed to asbestos, I encourage you to speak to your health care provider. Your provider can tell you if any of your health problems might be caused by asbestos exposure,” said Acting Surgeon General Galson in 2009. Read and share the full statement and find out about recent updates. April 6: Partnering for Prevention: Our Global Partners. ADAO works with awareness groups around the world. Read and share their progress towards an international asbestos ban. April 7: Communication, Collaboration, and Action from ADAO; Close with Candlelight Vigil. Honor our Mesothelioma Warriors fighting asbestos disease and remember those we have lost, as we finish Global Asbestos Awareness Week in unity.


e s a e s i D s o t s e y c b s a A c r o o v F d d A , e t i n n o i t U a c “ u d E t r , � o s s p e p n u e S r y a t i n Aw u m m o &C

The Asbestos Disease Awareness Organization 1525 Aviation Boulevard, Suite 318, Redondo Beach, California, 90278 (310) 251-7477 Registered 501(c) (3) nonprofit organization

www.AsbestosDiseaseAwareness.org


9th Annual International Asbestos Awareness Conference Leadership

March 22– March 24, 2013 ADAO BOARD OF DIRECTORS Freddi Segal – Gidan, PA, PhD Doug Larkin Linda Reinstein Laurie Rice Ellen Tunkelrott SCIENCE ADVISORY BOARD Co-Chairs: Arthur L. Frank, MD, PhD and Richard Lemen, PhD, MSPH Brad Black, MD Barry Castleman, ScD Raja Flores, MD Michael Harbut, MD, MPH, FCCP Hedy Kindler, MD AAC COMMITTEE CHAIRPERSONS Agenda & Sponsors Communications Conference Liaison Executive Assistant & Marriott Arrangements Family Tributes Friday Dinner & Marriott Catering Intern and Capitol Tours Conference Assistant National Spokesperson Photographer & Speaker Liaison Marriott Onsite Coordinator Videographer

Linda Reinstein Doug Larkin Suzanne Dupree Herman Hamilton Marilyn Amento & Ann Samuelson Lisa Harty Dominique Clark Julie Amento Jordan Zevon Emily Reinstein Ellen Costa Sue Ann Taylor, Zeel TV

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · (310) 251-7477


2013 Asbestos Disease Awareness Organization International Asbestos Awareness Conference Program  

9th Annual Asbestos Disease Awareness Organization International Asbestos Awareness Conference “The Asbestos Crisis: New Trends in Prevent...

2013 Asbestos Disease Awareness Organization International Asbestos Awareness Conference Program  

9th Annual Asbestos Disease Awareness Organization International Asbestos Awareness Conference “The Asbestos Crisis: New Trends in Prevent...

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