Page 1

7TH ANNUAL

ASBESTOSAW ARENESSCONFERENCE

ASBESTOS:I MPACTON PUBLI C HEALTH, ENVI RONMENT,AND ECONOMY APRI L1–3,2011 FRI DAY,APRI L1

SATURDAY,APRI L2

Pr i vat eGat her i ngf or

Conf er ence

Fami l y,Pat i ent s ,&Car egi ver sOnl y

8: 00a. m.–5: 30p. m.

5: 00–6: 00p. m.

FRI DAY,APRI L1

SUNDAY,APRI L3

MeetandGr eetwi t h

Uni t yandRemembr anceBr unch

Jor danZevon&Jor danSummer s

9: 30–1 1 : 30a. m.

7: 00–9: 00p. m.


ADAO 2011 Annual International Asbestos Awareness Conference   

“ASBESTOS: IMPACT ON PUBLIC HEALTH, ENVIRONMENT, AND ECONOMY” 8:00 - 8:30

8:30 – 8:40 8:40 – 8:50 8:50 – 8:55 8:55 – 9:00

9:00 – 9:20 Session I 9:20 – 9:30

Registration and Continental Breakfast — Saturday, April 2nd Welcome and Opening Remarks Welcome: Linda Reinstein, ADAO President/CEO and Co-Founder Arthur Frank, MD, PhD, Chair of Department of Environmental and Occupational Health, Drexel University School of Public Health, ADAO Science Advisory Board Co-Chair Richard Lemen, PhD, MSPH, Assistant Surgeon General, USPHS (Ret.), ADAO Science Advisory Board Co-Chair Michael Harbut, MD, MPH, FCCP, Barbara Ann Karmanos Cancer Institute Distinguished Opening Presenter Celeste Monforton, MPH, DrPH, Occupational Safety and Health Education: Protecting Workers and Families 40 Years After OSHA’s Asbestos Standards

10:50 – 11:00

Asbestos Impact on Public Health – Chairperson: Arthur Frank, MD, PhD Julie Gundlach, The Power of Public Health Advocacy: A Patient’s Perspective Guadalupe Aguilar Madrid, MD, MSc, PhD, Mexico, Latest Research Developments in Mexico: Progress for Hope Brad Black, MD, Center for Asbestos Related Disease (CARD), Asbestos Screening and Health Effects: Observations of Interest Raja Flores, MD, Chief of Thoracic Surgery, Mount Sinai Medical Center, The Emerging Trends in the Treatment of Mesothelioma Michael Harbut, MD, MPH, FCCP, Barbara Ann Karmanos Cancer Institute, Primary Care Doctors and a Health Insurer Partner to Identify Asbestos-Related Disease Question and Answer Session

11:00 – 11:15

Break

Session II 11:15 – 11:25 11:25 – 11:40

Asbestos Impact on the Economy - Chairperson: Richard Lemen, PhD, MSPH Heather Von St James, Mesothelioma Patient, The Value of My Life in Dollars and Tears Paul Zygielbaum, Mesothelioma Patient, Dust into Gold: Banning Asbestos is Good Business

11:40 - 12:00

ADAO Asbestos Awareness Conference Awards The Honorable Max Baucus, United States Senator: Tribute of Hope Award Guadalupe Aguilar Madrid, MD, MsC, PhD: Dr. Irving Selikoff Lifetime Achievement Award Environmental Information Association: Tribute of Unity Award Sugio Furuya, Asian Ban Asbestos Network – Japan: Tribute of Inspiration Award Ronald Cyrus, honored posthumously: Warren Zevon “Keep me in Your Heart” Memorial Tribute Julie Gundlach, Mesothelioma Patient: Alan Reinstein Award

9:30 – 9:50 9:50 - 10:10 10:10 – 10:30 10:30 – 10:50

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.251.7477 www.AsbestosDiseaseAwareness.org


12:00 - 12:30

12:30 - 1:15

  Keynote: Linda Rae Murray, MD, MPH, President of the American Public Health Association (APHA), “The Voice of Public Health” Lunch

2:15 – 2:25

Asbestos Impact on the Economy James S. Webber, PhD, Asbestos: The Real Monster in Your Attic Kathleen Ruff, Right on Canada, Canada, The Human Cost of Canada’s Asbestos Industry to Asia Joachim Rösler, MD, MPH, Facharzt für Arbeitsmedizin, Sozialmediziner, Germany, Impact on surveillance, treatment and rehabilitation in Germany Question and Answer Session

2:25 – 2:40

Break

Session III

Effect of Asbestos on the Environment – Chairperson: Linda Reinstein Marilyn Amento, Mesothelioma Widow and ADAO Volunteer: Ambler: The Town That Asbestos Built Sugio Furuya, Asian Ban Asbestos Network, Japan, Decades Later: The Impact of Asbestos in Asia Fernanda Giannasi, Associação Brasileira dos Expostos ao Amianto (ABREA), Brazil, Workers versus the Asbestos Industry in Brazil Sean Fitzgerald, PG, Scientific Analytical Institute, Inc., From Rocks in the Ground to Poisons in the Air: Understanding the Nature of Asbestos Aubrey Miller, MD, MPH, National Institute of Environmental Health Sciences, Health Risks Associated with Non-Occupational Asbestos Exposure Question and Answer Session

Session II (con’t) 1:15 - 1:35 1:35 – 1:55 1:55 – 2:15

2:40 – 2:55 2:55 – 3:15 3:15 – 3:35 3:35 - 3:55 3:55 - 4:15 4:15 - 4:25 Session IV 4:25 - 4:40 4:40 – 4:55 4:55 – 5:20

5:20 – 5:30

Action, Today’s Information in Tomorrow’s World – Chairperson: Stephen M. Levin, MD Linda Reinstein, ADAO President/CEO and Co-Founder, Maximizing Education, Advocacy, and Community through Social Media Advocacy Brent Kynoch, Environmental Information Association, Identifying Asbestos Dangers in the Home Distinguished Panel: Barry Castleman, ScD Environmental Consultant, ADAO Science Advisory Board; Arthur Frank, MD, PhD, Chair of Department of Environmental and Occupational Health, Drexel University School of Public Health, ADAO Science Advisory Board Co-Chair; Richard Lemen, PhD, MSPH, Assistant Surgeon General, USPHS (Ret.), ADAO Science Advisory Board Co-Chair The Human Cost of Inaction Question and Answer Session

Closing 9:30-11:30

Unity and Remembrance Brunch – Sunday, April 3rd Kristen Olson and Kim (Olson) Sebesta, ‘With Love Comes Hope’ Keynote: Jordan Zevon, ADAO National Spokesperson

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.251.7477 www.AsbestosDiseaseAwareness.org


Dear Registrants, Speakers, Honorees, Sponsors, Volunteers and Guests: On behalf of everyone at the Asbestos Disease Awareness Organization, I welcome you to Atlanta for our 7th annual International Asbestos Awareness Conference. This year’s theme is: “Knowledge is Stronger than Asbestos”, and by participating in the 2011 conference and selflessly giving your time, expertise, and support, you are helping to prove this true. Together, we have worked to make education, community, and advocacy the three pillars that forge an ever growing base of global supporters, and you are a critical part of this grassroots movement. Looking back at how much has changed since we launched in 2004, I am awe-inspired and increasingly encouraged by the advances we have made together in asbestos disease awareness. This conference would not be possible without the hard work of many volunteers. Thanks go out to Executive Assistant Herman Hamilton and our Asbestos Awareness Conference Committee chairs who have worked for nearly a year to make this event a reality. Dr. Michael Harbut, Linda Remington, Patricia Ellis, and Elizabeth Katz at the Barbara Ann Karmanos Cancer Institute, have been incredible. Sue Ann Taylor and her Zeel TV team, our Atlanta family, rolled up their sleeves to maximize our outreach. We are also thankful to again welcome our National Spokesperson for ADAO, Jordan Zevon as we are incredibly honored and lucky to have Jordan’s continued leadership. He brings a true light to ADAO, sharing his compassion and splendid musical talents, and wisdom beyond his years; I feel so blessed to also call him my dear friend. We gather together at this time every year because Asbestos Awareness Week offers a beacon of hope for hundreds of thousands of current and future victims of asbestos diseases. This year is monumental because for the first time, we celebrate Global Asbestos Awareness Week, welcoming involvement from numerous countries and participants from across the world. We strongly encourage Congress and leaders worldwide to build on the momentum of this week and this conference by promptly enacting a complete ban on asbestos. That is the only way we can hope to eliminate this inexcusable epidemic. Thank you for joining us today. We are a family and this conference is a strong reaffirmation that together, we can effect real change. In unity, Linda Reinstein Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.251.7477 www.AsbestosDiseaseAwareness.org


7th Annual Asbestos Awareness Conference Committees April 1 – 3, 2011 Science Advisory Board Co-Chairs: Arthur L. Frank, MD, PhD and Richard Lemen, PhD, MSPH Brad Black, MD

Michael Harbut, MD, MPH, FCCP

Barry Castleman, ScD

Hedy Kindler, MD

Raja Flores, MD

Steven Levin, MD AAD Committee Chairpersons

ADAO - Communications Agenda & Sponsors Barbara Ann Karmanos Cancer Institute Barbara Ann Karmanos Cancer Institute Communications Conference Liaison Executive Assistant Family Tributes National Spokesperson Photographer Speaker Liaison and Remembrance Service Veterans and Medical Outreach Videographer Volunteer Coordinator Website

Doug Larkin Linda Reinstein Dr. Michael Harbut Linda Remington, Patricia Ellis and Elizabeth Katz Suzanne Dupree Herman Hamilton Marilyn Amento Jordan Zevon Emily Reinstein Sharry Erzinger Josh Zygielbaum Sue Ann Taylor, Zeel TV Debbie Granow Ellen Tunkelrott

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · (310) 251-7477


ADAO Science Advisory Board Science Advisory Board Co-Chairmen

Arthur Frank, MD, PhD Richard Lemen, PhD, MSPH

Science Advisory Board Members

Brad Black, MD Barry Castleman, ScD Raja Flores, MD Michael Harbut, MD, MPH, FCCP Hedy Kindler, MD Steven Levin, MD The Asbestos Disease Awareness Organization 1525 Aviation Boulevard, Suite 318 • Redondo Beach • California • 90278 • 310. 251.7477 “United for Asbestos Disease Awareness, Education, Advocacy, Prevention, and Community Support” www.AsbestosDiseaseAwareness.org


2011 Asbestos Awareness Conference Speakers, Honorees, and ADAO Leadership Biographies Marilyn Amento is ADAO's State Representative for Pennsylvania and Family Tribute Chair. Marilyn is the widow of Joe Amento, Jr. who died of mesothelioma at the age of 53, only 6 months after his first symptom. Joe was exposed to asbestos approximately 40 years prior while visiting his Dad at one of the several asbestos plants in the small Borough of Ambler, a Philadelphia suburb. Marilyn has a Master’s Degree in Human Services Management from The Heller School of Brandeis University and is also the mother of two teens, Joe and Julie. She channels her grief and anger with the asbestos industry by working with ADAO, educating the public, government officials, and the medical community about the harmful effects of asbestos. Dr. Brad Black, MD, Director of Center for Asbestos Related Disease Dr. Black has been a leading advocate for healthcare, treatment, and research to benefit those impacted by Libby amphibole asbestos. A pediatrician by specialty, he additionally spent 10 years as the Medical Director for the urgent care center and as an emergency room physician. Since 2000, emerging out of his role as County Health Officer, Dr. Black has become dedicated to developing the healthcare infrastructure for asbestos related disease healthcare, including the planning and implementation of the original ATSDR screening program and the developing the CARD. The Libby medical community believes in the importance of the CARD for specialized care and research efforts. Dr. Black brings to Libby a level of experience, enthusiasm, and dedication that is appreciated greatly by the CARD as well as the community.

Barry Castleman, ScD, is an Environmental Consultant trained in chemical and environmental engineering. He holds a Doctor of Science degree from the Johns Hopkins School of Public Health. He has been a consultant to numerous agencies of the US government and other governments, international bodies, and environmental groups dealing with a wide range of public health issues. He has testified as an expert in civil litigation in the US, on the history of asbestos as a public health problem and the reasons for failures to properly control asbestos hazards. Dr. Castleman has spent the past 35 years working on asbestos as a public health problem

Sharry Erzinger, Dr. P.H., MPH., Physicians Assistant. Volunteer with ADAO. Dr. Erzinger has extensive experience in development and evaluation of public health programs. Using her medical background as physicians’ assistant and research training in public health, she brings technical research into practical programming and advocacy for broad international audiences. As a Research Associate Professor, she currently directs the Community Health Sciences program at University of Colorado at Denver where she continues to teach and provide consultation in evaluation of health programs. She has lived and worked in a variety of Latin American countries and has ongoing community health projects in Peru and Ecuador. She is committed to publicizing the toll of asbestos and preventing asbestos disease in low and middle-income countries.

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.251.7477 www.AsbestosDiseaseAwareness.org


2011 Asbestos Awareness Conference Speakers, Honorees, and ADAO Leadership Biographies Sean Fitzgerald, P.G. President, Scientific Analytical Institute, Inc. Mr. Fitzgerald is a professional geologist and microscopist with over 20 years experience managing growing businesses and laboratories across the country. He has been guest speaker at asbestos workshops and conferences as well as local, state, and federal regulatory meetings and reviews, and advises private and governmental entities on issues of asbestos regulation, science, and process development. Mr. Fitzgerald has been retained and has given testimony as an expert researcher on asbestos in soils, naturally occurring asbestos, and asbestos in household products, with his work appearing before English Parliament and the US Senate. He has spoken on asbestos issues before the Environmental Information Association (EIA- formerly the National Asbestos Council: NAC), American Society for Testing Materials (ASTM International), and at the National Press Club in Washington, DC.

Raja Flores, MD, is the Chief of Thoracic Surgery, Ames Professor of Cardiothoracic Surgery, at Mt. Sinai Medical Center in New York City. Dr. Flores helped pioneer the use of intraoperative chemotherapy for mesothelioma. He has also established VATS lobectomy as a gold standard in thoracic surgery, a minimally invasive approach that uses three small incisions in the treatment of lung cancer. He established the current program for this procedure at Memorial Sloan-Kettering Cancer Center, where he previously worked, and he published two sentinel studies establishing its oncological effect by demonstrating equivalent survival and recurrence rates but fewer complications and shorter hospital stays when compared to standard thoracotomy. He belongs to numerous medical and surgical societies and serves on several editorial boards.

Arthur L. Frank, PhD, MD is co-chair of ADAO's Science Advisory Board and serves as Professor of Public Health and Chair of the Department of Environmental and Occupational Medicine at the Drexel University School of Public Health in Philadelphia. Trained in both occupational medicine and internal medicine, Dr. Frank has been interested in the health hazards of asbestos for more than 35 years. He has published extensively on the hazards of asbestos, and clinically cared for asbestos effected patients. He has lectured internationally about the problems of asbestos, and worked in many settings looking at the diseases caused by this material.

Sugio Furuya is the Secretary General of the Japan Occupational Safety and Resource Center (JOSHRC). He has many years’ experience in efforts to ban asbestos through Ban Asbestos Network Japan (BANJAN) as well as regionally for the Asian Ban Asbestos Network (A-BAN). In the past, he has advocated for shortened working hours, prevention of occupational injuries among migrant workers, and compensation of health costs for migrant workers. He is a member of the Japan Society for Occupational Health (JSOH) and Japan Society for Labor Law (JSLL).

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.251.7477 www.AsbestosDiseaseAwareness.org


2011 Asbestos Awareness Conference Speakers, Honorees, and ADAO Leadership Biographies Fernanda Giannasi, ABREA, Civil and Safety and Heath Engineer. Fernanda Giannasi has been a Federal Factory Inspector in Brazil since 1983. During that time she has become a specialist in issues relating to asbestos, nuclear energy and other toxics and carcinogens such as silica. Having been exiled to Osasco in 1995, Ms. Giannasi became aware of a number of cases of asbestos disease amongst the local population. In collaboration with former workers from the Osasco asbestos-cement factories, whom she came to know during her inspections of Eternit’s plant during the 1980s, she began an investigation into the incidence of asbestos-related diseases in the city. She was a founding member of an organization – ABREA – that was set up in 1995 to act as the voice for Brazil’s asbestos victims. For her work on behalf of Brazil’s asbestos victims, she has received death threats and been sued by Brazilian asbestos stakeholders. She has also been honoured by various groups in Brazil, the U.S., Japan, and Canada. Julie Gundlach was 35 when diagnosed with peritoneal mesothelioma in 2006. This wife and mother was swiftly caught up in a world of surgery, travel, and chemotherapy to fight the deadly diagnosis. Since, she has fought through 4 surgeries, over 20 chemotherapy treatments, and countless trips from St. Louis to New York City, where her specialized medical team practices. Likely exposed to asbestos as a child through her father's work as an electrician, Julie was appalled to learn about the profligacy of asbestos and its continued use. Since, she has fought not only to maintain her health, but to work towards asbestos and mesothelioma awareness, and to fight for a ban. From traveling to Washington D.C. to visit her Congressional Representatives, organizing a fundraising run, and sponsoring an informational booth at her local Earth Day, Julie has raised her voice on this issue, and will continue to do so, until we are heard and listened to. Herman Hamilton, Executive Assistant of ADAO, first became familiar with the medical and legal aspects of Asbestos as a result of meeting his neighbor and now long time friend of 25 years, Dr. Barry Castleman. Herman joined ADAO in January of 05 as the Veterans Representative before moving on to Assist Linda in the day-to-day operations of ADAO. Among his many duties he has been a liaison for other likeminded asbestos groups, works with Congressional staffers to set up meetings regarding ongoing legislation and everything in between. His proudest accomplishment has been his work to defeat the Asbestos Trust Fund. The goal he would like to achieve the most is the passage of legislation for a total ban of Asbestos. It’s been a perfect fit, ever since. Outside of ADAO, Herman has served on the Board of Directors of Legal Aid Bureau of Maryland for the past 10 years and counting. Michael R. Harbut, MD, MPH, FCCP is Chief of the Center for Occupational and Environmental Medicine: Clinical Assistant Professor, Wayne State University, School of Medicine, Detroit, Michigan. An Internationally known expert in the diagnosis and treatment of environmental and workplace diseases Dr. Harbut has been named coDirector of the National Center for Vermiculite and Asbestos Related Cancers. He is the co-author of the American Thoracic Society’s 2004 Recommendations for the Diagnosis and Treatment of Non-Malignant Disease Caused by Asbestos Exposure. Dr. Harbut is a past chair of the occupational and environmental health section of the American College of Chest Physicians and has served on the Board of Directors of the Mesothelioma Applied Research Foundation. Dr. Harbut brings his expertise to address the need for early diagnosis and aggressive treatment of asbestos related diseases. Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.251.7477 www.AsbestosDiseaseAwareness.org


2011 Asbestos Awareness Conference Speakers, Honorees, and ADAO Leadership Biographies Tanis Hernandez, LCSW Outreach Coordinator, Center for Asbestos Related Disease Tanis is the Outreach Coordinator at the CARD and has contributed her talents since December of 2002. She is a licensed clinical social worker and has been one of the primary individuals involved in addressing the psychological and social needs of the Libby community related to asbestos exposure and it's health impacts. Tanis was born and raised in northwest Montana and completed her undergraduate degree at the University of Montana and her Masters through the Missoula campus of Walla Walla College. She moved to Libby in 2000. She has extensive experience in assisting, supporting and counseling individuals, families and communities regarding chronic health and mental health issues. Tanis also coordinates all community outreach and education activities at the CARD.

J. Brent Kynoch, Kynoch Environmental Management, Inc. (KEM) was formed in 1996 to provide value engineered consulting services within the asbestos abatement industry. Since 1996, KEM has earned a reputation as one of the leading consultants in asbestos inspection, assessment, abatement design, and management. J. Brent Kynoch has been a leader in the asbestos abatement industry since 1984. KEM’s licensed Asbestos Inspectors and Management Planners have provided extensive service in support of federal AHERA and NESHAP regulations. Over the years, they have successfully provided asbestos consulting for historic restorations, hospital renovations, and AHERA school abatement projects. With their experience in asbestos testing and management for the federal agencies, the Department of Defense, and architecture and engineering firms, they have earned a reputation for diversity and dependability.

Doug Larkin is the Communications Director and Co-Founder of Asbestos Disease Awareness Organization (ADAO) – which works to help raise awareness about asbestos related diseases, while serving as a global community for asbestos victims and their families. Doug holds a B.A. in political science from Muskingum College, New Concord, Ohio. “Congress responds to their constituents. It’s through your letters, phone calls, stories, and donations to ADAO, that enables us to advocate fair and just legislation for present and future victims. That is the power of grassroots.” Doug has worked tirelessly behind the scenes to advocate fair and just legislation to present to Congress. Doug’s father-in-law William D. Shields was a victim of mesothelioma.

Richard Lemen, PhD, is a former Assistant Surgeon General of the United States and also served as the Acting Director and the Deputy Director of the National Institute for Occupational Safety and Health before his retirement. He has been a practicing epidemiologist for more than forty years. He has taught graduate level courses on environmental and occupational health issues, including asbestos, at the Rollins School of Public Health at Emory University in Atlanta, Georgia. He has also testified on behalf of asbestos victims; Dr. Lemen is a world-renowned author, speaker, and lecturer on this topic.

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.251.7477 www.AsbestosDiseaseAwareness.org


2011 Asbestos Awareness Conference Speakers, Honorees, and ADAO Leadership Biographies Guadalupe Aguilar Madrid. MD.MSc. PhD. Specialist in Occupational Medicine, Master of Science in Occupational Health, and Doctor of Science in Epidemiology. She has been a Research Associate "C" on Health Research Unit at Work XXI Century National Medical Center, IMSS (Mexican Social Security Institute), since 2004. Dr. Aguilar Madrid is a Member of the National System of Researchers, Researcher Level I. She has published in international journals and serves as external reviewer of the Salud Publica de Mexico since 1999. She is a member of the Editorial Board of the Revista Medicina y Seguridad en el Trabajo. Instituto de Salud Carlos III. Madrid, Spain, since 2008. Professor Faculty of Medicine.UNAM. Collaborate with CILAS (Centro de Investigación Laboral y Asesoría Sindical). Her research interests are: Occupational cancer (pleural mesothelioma and lung cancer). Assessment of exposure to lead, asbestos, noise and organic solvents. Seroprevalence of H1N1 influenza in healthcare workers. Burden of disease in workers. Medical care costs in insured by the IMSS. Occupational laws and regulations. In addition she trains health workers on health and safety. Captain Aubrey K. Miller, M.D., M.P.H., is currently Senior Medical Advisor, Office of the Director, National Institute of Environmental Health Sciences (NIEHS), National Institutes of Health.(NIH). He has responsibility for strategic planning and coordination of environmental health issues and activities among HHS and other federal agencies including supervisory oversight of the NIEHS office in Bethesda, MD. He has had extensive involvement in the Gulf Oil Spill (GOS) response providing testimonies before US Senate and House Committees on the health concerns of environmental exposures, initiating and co-chairing a federal interagency workgroup to identify and coordinate human health research needs, facilitating an NIEHS-sponsored federal workshop to assess current and future toxicology research needs, and an Associate Investigator for a new longitudinal cohort study (GuLF STUDY) to evaluate the health effects of over 50,000 workers involved in the GOS clean-up. Captain Miller has been extensively involved with the response to asbestos contamination in Libby, Montana; assessing health effects, exposures, and facilitating improved access to health care for members of Community. Celeste Monforton, DrPH, MPH is a professorial lecturer in the Department of Environmental and Occupational Health at the George Washington University's School of Public Health and Health Services. Her research includes assessment of worker health and safety laws and policies, and their effectiveness in protecting workers from illnesses, disability and death. She has published articles on strategies used by economic interests to manipulate scientific evidence to create uncertainty about health risks in order to delay protective regulatory action. Prior to her academic appointment, Dr. Monforton was a federal employee at the U.S. Department of Labor’s Occupational Safety and Health Administration (OSHA, 1991-1995) and Mine Safety and Health Administration (MSHA, 1996-2001). Dr. Monforton served on a special panel appointed by the West Virginia Governor to investigate the January 2006 Sago coal mine disaster that took the lives of 12 workers. She is currently serving on the Governor's special team investigating the April 5 disaster at Massey Energy's Upper Big Branch mine in Naoma, WV, that killed 29 workers. Dr. Monforton is an active member of the American Public Health Association and has served in leadership position with the organization’s Occupational Health and Safety Section.

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.251.7477 www.AsbestosDiseaseAwareness.org


2011 Asbestos Awareness Conference Speakers, Honorees, and ADAO Leadership Biographies Linda Rae Murray, MD, MPH, is the Chief Medical Officer of the Ambulatory and Community Health Network, and President of American Public Health Association. She has spent her career serving the medically underserved. More recently, Dr. Murray served as Medical Director of the federally funded health center, Winfield Moody, serving Cabrini Green Public Housing Project in Chicago. Dr. Murray served as Chief Medical Officer Primary Care for the twenty-three primary care and community health centers comprising the Ambulatory & Community Health Network of the Cook County Bureau of Health Services. Today Dr. Murray serves as the Chief Medical officer for the Cook County Department of Public Health of the Cook County Health & Hospital System, the state certified public health agency for suburban Cook County. She practices as a general internist at Woodlawn Health Center, is an attending physician in the Division of Occupational and Environmental Medicine at Cook County Hospital and is an adjunct Assistant Professor at the University of Illinois School of Public Health (Occupational & Environmental Health and the Health Policy & Administration Departments. She has been a voice for social justice and health care as a basic human right for over forty years.

Kristen Olson became involved with Asbestos Disease Awareness Organization after the loss of her mother to pleural mesothelioma. Kristen is a food editor for Betty Crocker and has always been happiest in the kitchen elbow deep in flour; sharing a skill that her mother taught her. She found food to be a therapeutic way to keep hope and strength alive even during the hardest times. She is sharing recipes, telling her story and spreading awareness and knowledge to prevent further exposure and loss from asbestos. Kristen holds a B.S. in Food and Nutrition and lives in Minneapolis, where she creates memories around the kitchen table with her twin sister and their loved ones.

Linda Reinstein is the President/CEO and Co-Founder of Asbestos Disease Awareness Organization (ADAO). Reinstein became an activist when her husband, Alan, was diagnosed with mesothelioma in 2003. She co-founded the Asbestos Disease Awareness Organization in 2004 and now serves as President and CEO. Since 2004, Reinstein, a highly sought-after speaker, has frequently served as a Congressional witness and resource for the U.S. Senate and House of Representatives. She has presented to the Department of Labor (OSHA), British House of Commons, and audiences in Japan, Mexico, Thailand, Holland, China, and the United Kingdom. Recognized as an expert with more than 30 years of nonprofit experience in ‘grassroots/grasstops’ advocacy, Reinstein specializes in leveraging social networks and new media to connect with patients, families, and supporters. Her proficiency in this powerful advocacy space has exponentially increased ADAO’s effectiveness in disseminating information, in addition to providing a much-needed forum for the Asbestos Victims’ Community to cathartically express their anger, support each other, and offer hope. Hardwired for advocacy, she continues to work domestically and internationally to increase public awareness about asbestos, prevent asbestos exposure, and advocate for the full ban of asbestos and funding for a cure for asbestos-related disease. In 2010, Reinstein was awarded the highest level of the Presidential Volunteer Service Award for her 4,000 hours of volunteerism during her lifetime.

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.251.7477 www.AsbestosDiseaseAwareness.org


2011 Asbestos Awareness Conference Speakers, Honorees, and ADAO Leadership Biographies Joachim A. Roesler, M.D., M.P.H., PhD., is the head occupational physician at the University of Cologne, Germany. After medical school from 1977 – 1983 in Regensburg, Vienna, Zuerich and Goettingen. He passed a postgraduate education MPH at the Institute of Public Health, University of the Philippines 1984 – 1985. He was appointed as senior physician in the Institute and Outpatient Clinic for Occupational and Social Medicine of the University of Giessen from 1989 – 1998. In addition to clinical evaluation and treatment of patients with occupational diseases, his research includes occupational and environmental lung disorders. In 1993 he obtained his Doctoral degree (“summa cum laude”) at Giessen University with his dissertation "Asbestos exposure and cancer mortality in Germany". Since 2003, Dr. Roesler is a professor of Medicine at the University of Applied Science in Bonn-Rhine-Sieg. His clinical practice includes patients with all occupational diseases, in particular occupational cancer and leukemia, asbestosis, asthma and silicosis. Dr. Rosler is a member of the German Society of Occupational and Environmental Medicine (DGAUM) and the Society of German Company and Industrial Physicians (VDBW). Kimberly Rowse, RN Clinical Coordinator, Center for Asbestos Related Disease Kimberly began her position as Clinical Coordinator at CARD in mid-July of 2004. She brings with her over fourteen years of clinical experience in a variety of capacities, including nine years of administration. Kimberly's clinical expertise includes many years as a critical care nurse and brings an established network of professional resources through her work experiences. Kimberly's professional experience includes grant writing, start-up and program development including the implementation and maintenance of clinical programs that ensure quality care for patients. Not only is Kimberly the Clinical Coordinator, she also is the primary Clinical Nurse who provides day-to-day services for patients. Kimberly and her husband Peter, who is a family nurse practitioner in the Libby community, have lived in the area for over ten years and make their home in the Yaak. Kathleen Ruff is author of Exporting Harm: How Canada Markets Asbestos to the Developing World. She is a former director of the British Columbia Human Rights Commission. She was a director of the Court Challenges Program which enabled groups to pursue legal cases to defend equality rights and minority language rights under the Canadian Charter of Rights & Freedoms. She was host of a national CBC television program Ombudsman and founding publisher of the Canadian Human Rights Reporter. She is presently a director of the Rideau Institute, a public interest organization dedicated to peace and social justice. She is the founder of a citizens’ human rights website RightOnCanada.ca which has been leading a campaign to end Canada’s export of asbestos. She has been deeply involved in national and international efforts to ban asbestos. Kimberly Sebesta is daughter of a Mesothelioma victim, full time wife and cog in the workings of corporate America and a part time advocate and soap box speaker, trying to spread awareness and knowledge to help prevent further exposure and deaths caused by asbestos. By using social media, word of mouth and other tools, we are able to reach those who are looking for more information about asbestos. Facts and numbers however good, many times loose their personal touch; unlike the raw emotion and grief that comes with the sharing of stories and recent experiences. The stories and memories are what keep us going and help others who have not personally experienced the wrath of asbestos, to understand its repercussions.

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.251.7477 www.AsbestosDiseaseAwareness.org


2011 Asbestos Awareness Conference Speakers, Honorees, and ADAO Leadership Biographies Freddi Segal-Gidan, PA, PhD is the director of the Rancho los Amigos/USC California Alzheimer’s Disease Center. She is a physician assistant with over three decades of extensive clinical experiences, most of that caring for older adults with chronic illnesses. She received her doctorate in gerontology as part of the first class of doctorate trained gerontologists in the country from the USC Leonard Davis School of Gerontology. Dr. Segal-Gidan holds appointments as assistant clinical professor in the department of neurology at the USC Keck School of Medicine and at the USC School of Gerontology. She is actively engaged in clinical care, research and training of health professionals and a strong advocate for geriatric training of all health care providers.

Jordan Summers is the songwriter and keyboardist for the band ALL DAY SUCKER as well as New West recording artist Jordan Zevon. Summers co-produced and co-wrote Zevon’s debut album, Insides Out to much critical acclaim. Summers and Zevon, along with All Day Sucker front man Morty Coyle also won best song in the Pop category and grand prize over all in the prestigious U.S.A. Songwriting Competition for their song Home, a touching love song to Jordan Zevon’s late father, Warren Zevon. “The Jordans” previously took first prize in the Pop category in The U.S.A. Songwriting Competition for their original song The Joke’s On Me, which they performed on Late Night with David Letterman.

Ellen Tunkelrott, Webmaster, is a Contract and Grant Administrator for the original think tank, and resides in Redondo Beach, California. She became friends with Linda and Alan Reinstein through local community volunteer activity. Linda and Ellen collaboratively brainstormed the virtual non-profit site www.asbestosdiseaseawareness.org, and Ellen developed the original site based on the concepts and direction from those sessions. She has a B.A. in Psychology from California State University, Long Beach, and an MBA from Loyola Marymount University. She is a Certified Paralegal and is licensed by the County of Los Angeles as a Legal Document Assistant. She is self-taught in web design and development. In her spare time, Ellen is an avid photographer, gardener and is a magician member of the prestigious Academy of Magical Arts, located in the world renowned Magic Castle in Hollywood, California

Heather Von St James is a 42 year old wife to Cameron and mom to 5 year old Lily Rose. Diagnosed with Malignant Pleural Mesothelioma at the young age of 36, just 3 1/2 months after the birth of her one and only child, and now is a 5 year survivor of the disease. She is a strong advocate for The International Mesothelioma Program and Dr David Sugarbaker's work. She spends her spare time volunteering at her daughter's school, being with friends and family and living life to the fullest. Her favorite quote is, "Life is a banquet and most poor suckers are starving to death." And this is how she lives her life. Her goal is to bring about hope to mesothelioma patients and awareness regarding the disease.

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.251.7477 www.AsbestosDiseaseAwareness.org


2011 Asbestos Awareness Conference Speakers, Honorees, and ADAO Leadership Biographies James S. Webber, PhD, is a Research Scientist with the New York State Department of Health’s Wadsworth Center, and an Assistant Professor in the School of Public Health of the State University of New York at Albany. He is Chair of ASTM Committee D22, which writes consensus standards for asbestos analysis, and is Secretary of the US Technical Advisory Group to ISO, where international asbestos methods are developed. He has served as the leader of two EPA peer review panels and is a member of the EPA Science Advisory Board Asbestos Panel. His research has focused on detection of asbestos in unconventional environments as indicators of asbestos contamination in time and space. He is author of more than two dozen peer-reviewed papers on asbestos.

Jordan Zevon, ADAO's tremendous National Spokesman, is a teacher, singer, and songwriter. Jordan was executive producer of his father, Warren Zevon's, final album The Wind. He also co-produced "Enjoy Every Sandwich: The Songs of Warren Zevon" which features an all-Star cast of singers and musicians. Jordan recently released his own EP entitled Jordan Zevon which is available from CDBaby.com. Jordan's immeasurable commitment to asbestos victims and concerned citizens has provided a united voice that will continue to help ensure that their rights are fairly represented and protected, while raising public awareness about the dangers of asbestos exposure and often deadly asbestos related diseases.

Joshua M. Zygielbaum, ADAO Medical Outreach, is a former Sergeant in the United States Marine Corps who became involved with Asbestos Disease Awareness Organization in 2009 after watching his fathers’ successful battle with Peritoneal Mesothelioma. Joshua holds a BA in History from the University of California Santa Barbara and is currently working towards a Masters in Public Administration with a focus on Non-Profit Organization and Management at the University of Colorado Denver. Since serving in the military, Josh has been involved with corporate business development and finance. He is currently in banking with Wells Fargo Bank, NA. He resides near Denver, Co with his wife, Tammie, and daughter, Ava.

Paul Zygielbaum is a veteran business executive whose career spans the aerospace, electric utility, electronic communications and biomedical device industries. He holds masters degrees in engineering and business administration. Paul has published technical papers, articles and reviews in the fields of aerospace research, energy technology, and medicine. He is a co-founder and chief operating officer of C8 MediSensors, a corporation developing non-invasive medical sensors. An experienced community volunteer, Paul has chaired the Sonoma County Human Services Commission and served on the boards of his local United Way and other organizations. Since his 2004 diagnosis with malignant peritoneal mesothelioma, Paul and his wife, Michelle, have become activists in grass-roots campaigns to ban asbestos, to protect the rights of asbestos-related disease victims and their families, and to improve medical treatment and seek cures. Paul and Michelle have three grown children and two grandchildren.

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.251.7477 www.AsbestosDiseaseAwareness.org


Senate Resolution 63 IN THE SENATE OF THE UNITED STATES 112th CONGRESS 1st Session

Designating the first week of April 2011 as ‘National Asbestos Awareness Week’ Whereas dangerous asbestos fibers are invisible and cannot be smelled or tasted; Whereas the inhalation of airborne asbestos fibers can cause significant damage; Whereas asbestos fibers can cause cancer such as mesothelioma, asbestosis, and other health problems; Whereas asbestos-related diseases can take 10 to 50 years to present themselves; Whereas the expected survival time for those diagnosed with mesothelioma is between 6 and 24 months; Whereas generally little is known about late stage treatment of asbestos-related diseases and there is no cure for such diseases; Whereas early detection of asbestos-related diseases may give some patients increased treatment options and might improve their prognoses; Whereas the United States has reduced its consumption of asbestos substantially yet continues to consume almost 820 metric tons of the fibrous mineral for use in certain products throughout the Nation; Whereas asbestos-related diseases have killed thousands of people in the United States; Whereas exposure to asbestos continues, but safety and prevention of asbestos exposure already has significantly reduced the incidence of asbestos-related diseases and can further reduce the incidence of such diseases; Whereas asbestos has been a cause of occupational cancer; Whereas thousands of workers in the United States face significant asbestos exposure; Whereas thousands of people in the United States die from asbestos-related diseases every year; Whereas a significant percentage of all asbestos-related disease victims were exposed to asbestos on naval ships and in shipyards; Whereas asbestos was used in the construction of a significant number of office buildings and public facilities built before 1975; Whereas people in the small community of Libby, Montana have asbestos-related diseases at a significantly higher rate than the national average and suffer from mesothelioma at a significantly higher rate than the national average; and Whereas the establishment of a `National Asbestos Awareness Week' would raise public awareness about the prevalence of asbestos-related diseases and the dangers of asbestos exposure: Now, therefore, be it Resolved, That the Senate -1) designates the first week of April 2011 as “National Asbestos Awareness Week”; 2) urges the Surgeon General to warn and educate people about the public health issue of asbestos exposure, which may be hazardous to their health; and 3) respectfully requests the Secretary of the Senate to transmit a copy of this resolution to the Surgeon General. The Asbestos Disease Awareness Organization 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · www.adao.us


April 1, 2009

Statement from Acting Surgeon General Steven K. Galson about National Asbestos Week In recognition of ‘National Asbestos Awareness Week,’ I urge every American to become aware of the public health issues of asbestos exposure and the steps they can take to protect their health. In recent decades, because of concern about asbestos’ health effects, production and use has declined substantially. Most individuals exposed to asbestos, whether in a home, in the workplace, or out-of-doors will not develop disease- but there is no level of asbestos exposure that is known to be safe and minimizing your exposure will minimize your risk of developing asbestos-related disease. Asbestos is the name given to a group of fibrous minerals that occur naturally in the environment. Low levels of asbestos are commonly in the air as fibers enter the environment from natural rock outcroppings, products that contain asbestos, former asbestos mining and milling operations, and from disturbance of asbestos-containing material. It is when we are exposed to much more concentrated levels of asbestos that we should be concerned. Therefore, it is important for all Americans to be aware of asbestos levels in their environment. Asbestos can be dangerous if it is inhaled. Activity that disturbs asbestos causing these small fibers to float in air increases the chances of inhalation and the contraction of asbestos-related diseases. Disturbance is what leads to exposure. Do not attempt to touch or remove asbestos by yourself. Only people professionally trained and certified to safely handle asbestos should remove it. Once breathed in, asbestos fibers can remain in the lungs for years and even decades. Inhalation of asbestos fibers can cause inflammation and scarring of the lungs, changes in the lining of the chest cavity around the lung, and certain cancers. Remember that tobacco smoke greatly increases your risk of lung cancer if you have also been exposed to asbestos. If you think you have been exposed to asbestos, I encourage you to speak to your health care provider. Your provider can tell you if any of your health problems might be caused by asbestos exposure. To learn more about asbestos and asbestos related diseases, please visit: http://www.atsdr.cdc.gov/asbestos/ http://www.cdc.gov/niosh/topics/asbestos/ http://www.epa.gov/asbestos/http://www.surgeongeneral.gov/news/pressreleases/pr20090401.html

ADAO salutes the United States Senate for “urging the Surgeon General to warn and educate people about the public health issue of asbestos exposure.”


cooking is love Keeping Families Together

– A Recipe for Life – Start with a loaf of HOPE Add a dash of RESILIENCE Season with a pinch of ENDURANCE To live with the challenges of an asbestos-related disease Sprinkle liberally with DETERMINATION And a handful of SPIRIT Cover with COURAGE And always serve on a bed of FAITH Nestled in a platter of LOVE * Poem courtesy of the Center for Asbestos Related Disease

To receive a copy of our new cookbook, please contact info@asbestosdiseaseawareness.org


ADAO Partner


2011 ADAO Sponsors – PLATINUM SPONSORS –

– GOLD SPONSORS – Adfero Group Baron and Budd, PC Motley Rice LLC – SILVER SPONSORS –

Belluck & Fox, LLP Kazan, McClain, Lyons, Greenwood & Harley, PLC Levy, Phillips & Konigsberg LLP – BRONZE SPONSORS – DeLuca & Nemeroff, LLP Early, Lucarelli, Sweeney & Strauss International Association of Heat & Frost Insulators & Allied Workers Maune Raichle Hartley French & Mudd, LLC Patten, Wornom, Hatten & Diamonstein, L.C. – FRIENDS OF ADAO – Barbara Ann Karmanos Cancer Center Canadian Autoworkers ADAO does not make legal or medical referrals, nor do we endorse its corporate sponsors, their policies, products or services.


ADAO Conference Event Hosts Meet and Greet Host Simmons Law Firm

Continental Breakfast Host Shein Law Center, LTD

Conference Lunch Hosts Shein Law Center, LTD Simmons Law Firm

Speaker Dinner Host Karmanos and ADAO

Unity and Remembrance Brunch Host Paul and Michelle Zygielbaum


2011 ADAO Honorees U.S. Senator Max Baucus will be presented with the Tribute of Hope Award for his steadfast commitment and determination to ban asbestos. (Video Acceptance) Guadalupe Aguilar Madrid, M.D., MSc, Ph.D., will be recognized with the Dr. Irving Selikoff Lifetime Achievement Award in honor of her dedicated research on the social and medical impact of asbestos on humankind in Mexico and around the world. Ron Cyrus will be honored posthumously with the Warren Zevon "Keep me in Your Heart" Memorial Tribute for his countless years of public service as a legislator, labor leader, and public servant. Environmental Information Association will receive the Tribute of Unity Award for its committed work to increase asbestos awareness and prevent exposure and disease. Sugio Furuya will be presented with the Tribute of Inspiration Award for being a bridge of hope and strength to victims of asbestos exposure in Asia and across the globe. Julie Gundlach, a mesothelioma patient, will be recognized with The Alan Reinstein Award for her commitment to education, advocacy, and support to countless patients and families.

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 路 Redondo Beach 路 California 路 90278 路 310.251.7477 www.AsbestosDiseaseAwareness.org


ADAO Conference Event Hosts Meet and Greet Host Simmons Law Firm

Continental Breakfast Host Shein Law Center, LTD

Conference Lunch Hosts Shein Law Center, LTD Simmons Law Firm

Speaker Dinner Host Karmanos and ADAO

Unity and Remembrance Brunch Host Paul and Michelle Zygielbaum


Asbestos Awareness Week Candlelight Vigil Light a candle in Unity, Hope & Remembrance

April 1, 2011 April 7, 2011 Please join ADAO for our annual worldwide candlelight vigil in honor and memory of those who have died from asbestos exposure, to support the families and friends who are grieving, and to find strength from those whose mission is to have a world free of asbestos.

ADAO will light five candles to

Remind us of love Heal our grief Give us courage Honor our memories Strengthen our pledge to continue


Asbestos Disease Awareness Organization (ADAO) was founded by asbestos victims and their families in 2004. ADAO is the largest independent organization dedicated to preventing asbestos-related diseases through education, advocacy, and community support. ADAO Summary of Accomplishments 

EDUCATION: o ADAO International Asbestos Awareness Conferences: DC, NY, PA, MI, CA and IL o ADAO Product Testing (Phase I) revealed 5 consumer products were contaminated with asbestos, 2007 o Monthly eNewsletters o Online Asbestos Video Library featuring all conference presentations o ADAO Asbestos Fact Sheet, 2010 o Chrysotile Asbestos Fact Sheet, 2010 o “How Small is Asbestos?” illustration, 2010 o “Education Starts at Home” diagram, 2010 o ADAO “Survivor” Video featuring Paul Zygielbaum, Mesothelioma Patient o "Asbestos Kills" slideshow featuring Warren Zevon’s Grammy winning song o Trilingual Early Detection, Prevention, and High Risk Occupations o 11th Inter-American Congress on Prevention of Occupation Risks, Mexico 2010 o Mexico City Parliament Briefing, Mexico 2010 o American Public Health Association (APHA), 2008, 2009, and 2010 o Leeds, England at Patient Carer Day, 2008 o International Mesothelioma Interest Group (IMIG), Amsterdam 2008 and Kyoto 2010 o House of Representative Sub-Committee Staff Briefing, 2008 and 2010 o Keynote, Environment Information Association (EIA) Conference, 2007, 2008, and 2009 o House of Commons Occupational Safety And Health, London 2007 o Asian Asbestos Conference in Thailand 2006, and China 2009 o Global Asbestos Congress in Tokyo, 2004

ADVOCACY: o Annual Asbestos Awareness Resolutions declaring the first week of April as National Asbestos Week as a recurring annual precedent o Attended U.S. House of Representatives meeting about The Safe Chemicals Act (TSCA) reform, 2010 o Testified before the Occupational Safety and Health Administration (OSHA), 2010 o Testified before California State Assembly’s Natural Resources Committee, 2010 o Helped fund a six member Asian Delegation to Canada to protest the production and global exportation of asbestos mined in Canada, 2010 o Testified before the EPW full Senate Committee, 2007 o Testified before the EHM House Subcommittee, 2008 o White House Meetings

COMMUNITY: o Developed and managed Ban Asbestos Site, 2008 o Launched the Global Ban Asbestos Network (GBAN) website, 2010 o Established multiple Facebook pages for ADAO, GBAN, and Voices on the Wall, 2010 o Launched the Asbestos Victims’ Community Resources page, 2010 Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · (310) 251.7477 www.AsbestosDiseaseAwareness.org


Emerging Leaders Paving the Way for Future Asbestos Awareness Advocacy By Emily Reinstein

It was just two years ago that my mom constantly threatened to unplug the Internet so that I would get off that “My-Face page”, as it was always a distraction while doing my homework. But since I helped my mom create the Asbestos Disease Awareness Organization (ADAO) Facebook page, she has come to understand the power of social media advocacy and the fact that there are more things to do on Facebook than just write on friends’ walls or comment on pictures. The social media revolution has made communicating and sharing so much more efficient, especially throughout the international community. As a teen, it is incredibly interesting to watch something that was solely a way for college students to find out information about their classmates, transform into a method through which organizations such as ADAO can easily raise money, send out messages, and keep in touch with followers. Facebook is just one of the many ways the younger generation has become more involved with global efforts. Not only are many of my friends active followers of the ADAO Facebook page, but many have engaged in helping with our efforts. Whenever I have the opportunity, I try to get ADAO’s name out in our community; whether it’s a school club or a networking event, people are always intrigued with ADAO’s development and accomplishments. I am proud to be a part of such a progressive generation, filled with thinkers, doers, and dreamers. For me personally, my world has been altered by my father’s death, but by using the strength and wisdom I’ve gained from my experiences with ADAO, I am able to honor his memory by making a positive impact in the lives of others. ADAO has given me a way to channel my emotions and use my passion to create change and, through this journey, I have come to understand that my voice is powerful: I can influence people to change laws, rethink their opinions, and come together to solve problems; and so can other teens and young adults. I hope that the other leaders in the asbestos awareness community feel the same sense of pride and power that I have felt through my involvement with ADAO, and I am confident that our generation will be able to make a lasting impact on legislation and help raise awareness on a global level.


KEYNOTE SPEAKER Linda Rae Murray, M.D., MPH President of American Public Health Association

Presented by Dr. Richard Lemen Linda Rae Murray, MD, MPH, has been the President of the American Public Health Association (APHA) since November 2009. She also serves as Chief Medical Officer of the Ambulatory and Community Health Network for Cook County, Illinois. She has spent her career serving the medically underserved through Occupational Medicine at a Workers Clinic in Canada, Residency Director for Occupational Medicine at Meharry Medical College in Nashville, and Bureau Chief for the Chicago Department of Health under Mayor Harold Washington. Dr. Murray has been an unmatched advocate for social justice and health care as a basic human right for over forty years. Her leadership at APHA and within her community is inspiring. She has given a voice to the vast public health issues associated with asbestos exposure and fought for the rights of victims – especially those unable to fight for themselves. The American Public Health Association has a long-standing commitment to global health and was one of the first U.S. non-governmental organizations to become involved in this field. Dr. Murray has taken on this mission, tirelessly advocating an asbestos ban to prevent future exposure and ensure the best care possible for current and future victims of asbestosrelated diseases. More recently, Dr. Murray served as Medical Director of the federally funded health center, Winfield Moody, serving the Cabrini Green Public Housing Project in Chicago. Dr. Murray has been an active member of a wide range of local and national organizations including serving as a member of the Board of Scientific Counselors for the Agency for Toxic Substances and Disease Registry (ATSDR), and the Board of Scientific Counselors for the National Institute of Occupational Safety and Health (NIOSH) and the Board of Directors of Trinity Health (a large Catholic Health system). Dr. Murray plays a leadership role in many organizations including NACCHO’s (National Association of City & County Health Officers) Health Equity & Social Justice Team, the national executive board of American Public Health Association and serves on the board of the Chicago based Health and Medicine Policy Research Group. She has been a voice for social justice and health care as a basic human right for over forty years. ADAO is proud to welcome Dr. Murray as the keynote speaker at our 2011 Asbestos Awareness conference. She is a formidable voice in the fight for public health and a ban on asbestos.


KEYNOTE SPEAKER Jordan Zevon, ADAO National Spokesman Jordan Zevon, ADAO's tremendous National Spokesman, is a teacher, singer, and songwriter. Following his father, rock musician Warren Zevon’s death in 2003 from mesothelioma, Jordan, his halfsister, Ariel, and longtime Zevon collaborator Jorge Calderón accepted Warren's two posthumous Grammy Awards for Best Rock Vocal Performance and Best Contemporary Folk Album. Jordan was executive producer of his father, Warren Zevon's, final album The Wind. He also co-produced "Enjoy Every Sandwich: The Songs of Warren Zevon" which features an all-Star cast of singers and musicians. Jordan recently released his own EP entitled Jordan Zevon, which is available from CDBaby.com. Jordan has dedicated a tremendous amount of time and talent to help raise awareness about the dangers of asbestos. A passionate advocate, he works tirelessly with ADAO. Jordan has traveled to Washington, DC countless times to join ADAO in meetings with Congress and key administration staff. He was instrumental in his leadership role of ADAO’s product testing that uncovered dangerous asbestos fibers in children’s toys. He regularly presents before the press, and on behalf of ADAO to help educate the public about asbestos dangers and share his personal story. He has donated his wonderful musical talents at ADAO and non-ADAO events, and participated in public service announcements – beautifully advocating through his wonderful gift. Jordan's immeasurable commitment to asbestos victims and concerned citizens has provided a united voice that will continue to help ensure that their rights are fairly represented and protected, while raising public awareness about the dangers of asbestos exposure and often deadly asbestos related diseases. Without Jordan, this year’s conference would not be possible and we thank him for his continued support as our beloved spokesperson.


Dr. Irving Selikoff Lifetime Achievement Award Guadalupe Aguilar Madrid, M.D., MSc, Ph.D Presented by Dr. Steven Levin Guadalupe Aguilar Madrid, M.D., MSc., PhD is being honored with the Dr. Irving Selikoff Lifetime Achievement Award in recognition of her dedicated research on the social and medical impact of asbestos on humankind in Mexico and around the world. Dr. Madrid is a Specialist in Occupational Medicine with a Master of Science in Occupational Health and a Doctor of Science in Epidemiology. She has been a Research Associate "C" on the Health Research Unit at Work XXI Century National Medical Center, IMSS (Mexican Social Security Institute), since 2004. Dr. Madrid is an outspoken leader in raising concerns about the import of asbestos into Mexico and the poor working conditions faced by Mexican workers who are exposed daily to this hazardous material. She has stated, “When asbestos was banned in industrialized countries and [producers] started to lose money, they came to the developing countries to recover their investments,” Aguilar says. “After some South American countries banned asbestos, they focused on Mexico as their main manufacturer.” Dr. Madrid has predicted an epidemic of asbestos-related diseases in Mexico because of its uncontrolled use and has stressed that the risk of such an epidemic will remain until there is a ban on the use of asbestos in Mexico. She has been an unmatched advocate for the banning of the use of asbestos in Mexico, based on the history of asbestos-related deaths in other countries and on the specific experience of Mexico. Dr. Aguilar Madrid is a Member of the National System of Researchers, Researcher Level I. She has been published in international journals and serves as external reviewer of the Salud Publica de Mexico since 1999. She is a member of the Editorial Board of the Revista Medicina y Seguridad en el Trabajo. Instituto de Salud Carlos III., Madrid, Spain, since 2008. She is also a Professor, Faculty of Medicine, Universidad Nacional Autónoma de México (UNAM). In addition, she collaborates with Centro de Investigación Laboral y Asesoría Sindical (CILAS). She also trains health workers on health and safety. ADAO extends its sincere thanks to Dr.. Madrid for her tremendous commitment and leadership; she is a global role model in the fight against asbestos.


Tribute of Hope Award U.S. Senator Max Baucus Presented by Dr. Brad Black U.S. Senator Max Baucus, the Senior Senator from Montana, has been unwavering in his support for the community of Libby, Montanta and for those who suffered, died and are dying from asbestos exposure due to the Libby mine. His continued dedication has made possible screening grants that have allowed for uninterrupted screening to continue in Libby and across the nation. He has secured the availability of healthcare for those who have been impacted by Libby amphibole asbestos. Senator Baucus has been undeterred in his efforts to ensure clean up of Libby’s environmental disaster and to prevent further asbestos exposure. The commitment he has shown to the Libby community and those affected with Libby Amphibole Asbestos has been second to no one. Senator Baucus spearheaded the passage of the Resolution declaring the first week of April 2011 as “Asbestos Awareness Week”. He has sponsored similar Resolutions in the past four years as well. "Asbestos Awareness Week is a rallying cry to keep the tragedy of Libby from happening again. It's also an opportunity to remind people that much more work lies ahead to help victims of asbestos-related diseases," said Baucus, who was instrumental in urging the EPA to declare its first ever public health emergency in Libby. "Although we can never fully right the outrageous wrong that took place in Libby, we can fight to make sure the community has the tools it needs to heal. And, we can keep working hard to make sure the public is aware of the tragic impact of asbestos exposure." Since news reports linked widespread deaths and illness to exposure to deadly asbestos fibers at the defunct W.R Grace and Co. mine, Baucus has visited Libby personally more than 20 times, secured millions for healthcare and cleanup, brought numerous White House cabinet secretaries to the town, helped save the CARD clinic in Libby, and has dogged the EPA under the previous Administration to keep cleanup efforts moving forward. Baucus, chairman of the powerful Senate Finance Committee and a key author of the Health Care Reform bill that was signed into law in 2010, has made cleaning up Libby and helping residents get the health care they need and deserve one of his top priorities. Included in the bill was a provision to provide ongoing health care to which all victims of public health emergencies are entitled under existing law. This provides funding for screenings as well as Medicare coverage for Libby residents with asbestos-related disease. He continues to battle attempts to repeal the Health Care Reform law. The Asbestos Disease Awareness Organization is proud to honor Senator Max Baucus with the Tribute of Hope Award for his ongoing efforts on behalf of residents of Libby, Lincoln County and asbestos-victims everywhere. We pray that his ardent hard work will continue throughout his tenure in the U.S. Senate.


Tribute of Inspiration Award Sugio Furuya Presented by Dr. Arthur Frank Sugio Furuya is an occupational health expert, secretary general of Ban Asbestos Network Japan (BANJAN), and secretary general of the Japan Occupational Safety and Health Resource. He has vast experience in efforts to ban asbestos through Ban Asbestos Network Japan (BANJAN) as well as regionally for the Asian Ban Asbestos Network (A-BAN). Mr. Furuya is a master of international collaboration and he and his Japanese counterparts are second to none in their outreach to other countries, particularly within Asia, with efforts to ban asbestos and create safer working environments. Mr. Furuya has made enormous efforts to educate the Japanese government and public as to the hazards of asbestos. He has hosted gatherings of the world's leading scientists concerned about asbestos to help further his efforts, and those of many others around the world. He always makes himself available to colleagues and shares his knowledge and insights. He truly serves as a model for action for the rest of the world. Recently, Mr. Furuya lead a multinational Asia-Québec Solidarity Delegation to Quebec, Canada to meet with Québec’s minister of Economic Development, Clément Gignac and six of his experts. The purpose of the meeting was to implore the Québec government to respect its own medical experts and to put human lives before political or financial interests and not finance the Jeffery Mine. Mr. Furuya commented, “We are scandalized by the lack of due diligence displayed by minister Gignac. If it were his family that would be exposed to this hazardous, carcinogenic product, [Gignac] would not be so casual, and uncaring. He would not wash his hands of the serious health risks. We are certain about this.” With the recent devastation in Japan, we are reminded how fragile our lives are, and are more grateful than ever to Mr. Furuya for his generous time and dedication to helping others. The Asbestos Disease Awareness Organization is pleased to present the Tribute of Inspiration Award to Mr. Sugio Furuya for being a bridge of hope and strength to victims of asbestos exposure in Asia and across the globe.


Tribute of Unity Award Environmental Information Association Presented by Dr. Barry Castleman The National Asbestos Council (NAC) was founded in 1983 by a group of professionals associated with the Georgia Institute of Technology (GTRI) in Atlanta, most notably the Certified Industrial Hygienists (CIH) Bill Ewing and William Spain. GTRI was the first federally funded asbestos training center in the country. They saw a need to form an association for distributing accurate, non-biased, honest information concerning asbestos-containing materials in buildings. In 1992, the NAC changed its name to the Environmental Information Association (EIA) in order to be more descriptive of the services that the association was providing to its members. The EIA is recognized for providing accurate, honest information regarding environmental issues in buildings and facilities. Currently, EIA has been asked by EPA to assist in a re-write of the EPA “Purple Book,” which is the “Guidance for Controlling Asbestos-Containing Materials in Buildings.” The EPA first published this guidance document in 1985, and the document has not been updated since that time. The EPA turned to EIA to re-write this important guidance document. The Environmental Information Association is currently comprised of over 500 members and member organizations throughout the United States and Canada. EIA disseminates information through a weekly e-mail bulletin, a monthly newspaper, a bi-monthly “insider” newsletter, a fall technical conference and a spring annual conference and exhibition. It is the distinct pleasure of ADAO to congratulate and recognize the EIA with this Tribute of Unity Award. It is a shining example that a group of dedicated professionals can make a world of difference through education and communication. The group is impassioned to bring the best possible science, information and reason to the environmental professional community and therefore, to the public. EIA’s far-reaching mission parallels that of ADAO: to improve public health through education and awareness. ADAO would further like to recognize these individual EIA members who have specifically given ADAO their time and expertise: Brent Kynoch, Jim Millette, James Webber, Dana Brown, Ron Dodson, Sean Fitzgerald, Andy Oberta, Kevin Cannan, and Tom Laubenthal, to name a few. Thank you EIA, for your dedication and Spirit of Unity. If you would like to learn more about the EIA, please visit their website at http://www.eia-usa.org/.


Alan Reinstein Memorial Award Julie Gundlach Presented by Linda Reinstein Julie Gundlach was only 35 and a mother of a three-year-old daughter in 2006 when doctors handed her a diagnosis of mesothelioma – a disease people commonly associate with older men who have worked in an occupational setting that brings them in close contact with asbestos. Gundlach, now 39, had just come through surgery to remove a tumor the size of a small cantaloupe from her pelvic area and a complete hysterectomy – procedures performed following what was thought to be ovarian cancer – when doctors told her she had something quite different: mesothelioma. They told her to focus on recovering from the surgery, but to get in touch with an oncologist. The oncologist intended to start chemotherapy, though he promised Gundlach no hope that it would be successful. “It was made clear that the treatment was to prolong my prognosis – not to cure me,” Gundlach said. “I was told to see a lawyer and to get my affairs ‘in order.’ “There is nothing so devastating as to be told to put your affairs in order. While my doctors didn’t say, ‘You will die,’ the implication was clear.” Despite the dreadful diagnosis, Gundlach gathered strength and took a proactive approach to seeking treatment. She attended a mesothelioma conference in Chicago where she identified specialists who would become her medical team. She also met people there who were dealing with mesothelioma and living healthy lives. “That seemed unreachable to me,” she said. Gundlach’s mesothelioma treatment began in January 2007 at New York-Presbyterian Hospital in Manhattan. She underwent several surgeries, as well as three months’ worth of chemotherapy treatments and interferon treatments – requiring her to travel to New York from her home in St. Louis three times a month. As she takes each day at a time to fight her cancer, she said she has three wishes. Her first wish is to save her own life so that she can be there for her daughter Madeline and husband Dan. The second is to come up with a cure to save everyone from mesothelioma, and the third is for a complete ban on asbestos. “More than anything, I want to live,” she said. “And even though some days it feels impossible to live, laugh and love as fully as I am able to, I will never give up hoping for a cure.”


Warren Zevon “Keep Me in Your Heart” Award

The Honorable Ronald Ray "Ron" Cyrus 1935 – 2006

Honored Posthumously By Jordan Zevon Ron Cyrus lost his hard-fought battle with mesothelioma on February 28, 2006. He was a dedicated man who during his 71 years served his country and dedicated his life to serve the working class. Most know Ron as the father of Country Singer and Actor, Billy Ray Cyrus and the grandfather of teen star and singer, Miley Cyrus. However, Mr. Cyrus served his country as a member of the United States Air Force in Japan after which he became blue-collar worker, a rigger, at Armco Steel Ashland Works, a known asbestos exposure site in Ashland, Kentucky. Later, Ron served his state as a member of the Kentucky Legislature being elected to 11 consecutive terms until his retirement in 1996. As Chair of the House Labor and Industry Committee Representative Cyrus was a strong advocate for working men and women, fought for the preservation of workers compensation, and battled for safety reforms. To honor Ron Cyrus the Kentucky legislature designated Sept. 26 of each year as Mesothelioma Awareness Day in the Commonwealth of Kentucky. The law came to be known as “The Ron Cyrus and Todd Hall Mesothelioma Awareness Act of 2009.” Todd Hall of Lexington, Kentucky, was a mesothelioma victim who died at the young age of 39. Ron was executive secretary-treasurer for the Kentucky AFL-CIO from 1984 to 1998. During his legislative tenure, Mr. Cyrus served as the Regional Representative for then Federal Reserve Chairman, Alan Greeenspan,. After he retired, Ron interrupted his enjoyment of horses and the outdoors to serve as Founding Chairman of the Billy Ray Cyrus Foundation, a charity assisting underprivileged children. Just as important, Ron, like my father, loved music. He was a member of a gospel-singing group, the Crownsmen, and, more importantly to many fans, he passed on his love of music to his son, Billy Ray, and his granddaughter Miley Ray. Now a star, Miley did what musicians are likely to do: when she lost her grandfather to this cruel and senseless disease, she wrote and recorded a song, “I Miss You,” in memory of him. I am deeply moved to honor Ron Cyrus with the Warren Zevon “Keep Me In Your Heart” Memorial Award.


RON CYRUS

“ My dad was everything to me and most of all he was my best friend. His character, trustworthiness and dedication made him a wonderful role model. If only money could bring better health, he would be with us today. I support ADAO and their efforts to ban asbestos. We all must work together in this fight. ADAO has my continued support in making everyone aware of this deadly disease.” — Billy Ray Cyrus


The Cyrus Family Salutes Our Beloved Ronald Ray Cyrus July 10, 1935 – February 28, 2006 On receiving the Warren Zevon "Keep Me in Your Heart" Memorial Tribute

The world is a better place because of Ron’s service to the US Air Force, his support to the AFL/CIO, his term with the Federal Reserve Board and his service to the Commonwealth of Kentucky. His blessings came from his family. He was our Dad, Grandpa, Brother, Uncle, Cousin and our Cyrus Family spokesperson. We now treasure hearing his voice as we listen to his gospel album. There is emptiness as we no longer can hear his laughter, feel his hugs, listen to his advice and fall victim to his teasing! Most of all – we miss him! The youngest of 8 children he was taken years before his time, because of mesothelioma. The Cyrus family Supports ADAO for their continued efforts in raising public awareness of this dreaded disease from asbestos exposure.


Keep Me In Your Heart By Warren Zevon

Shadows are falling and I'm running out of breath

You know I'm tied to you like the buttons on your blouse

Keep me in your heart for awhile

Keep me in your heart for while

If I leave you it doesn't mean I love you any less

Hold me in your thoughts, take me to your dreams

Keep me in your heart for awhile Touch me as I fall into view When you get up in the morning and you see that crazy sun

When the winter comes keep the fires lit

Keep me in your heart for while

And I will be right next to you

There's a train leaving nightly called when all is said and done

Engine driver's headed north to Pleasant Stream Keep me in your heart for while

Keep me in your heart for while Sha-la-la-la-la-la-la-li-li-lo

These wheels keep turning but they're running out of steam

Keep me in your heart for while

Keep me in your heart for while

Sha-la-la-la-la-la-la-li-li-lo

Sha-la-la-la-la-la-la-li-li-lo

Keep me in your heart for while

Keep me in your heart for while

Sometimes when you're doing simple things around the house

Sha-la-la-la-la-la-la-li-li-lo Keep me in your heart for while

Maybe you'll think of me and smile Keep me in your heart for while

Lyrics reprinted with permission. Š 2003 Zevon Music (BMI) / Googolplex Music (BMI)


Alan Reinstein ‐ 1939 – 2006  “Every Daughter Deserves a Dance with her Father”   Emily Reinstein    It’s hard to believe that 7 years ago, my mom and I flew to Washington D.C. out of anger and  hope for a change in our country.  We had no expectations and couldn’t even fathom walking down the  halls of the Senate.  But now, I constantly overhear my mom on the phone with representatives from  Senators and we have personally met with Senator Boxer.  Even more importantly, ADAO has embodied  the need for international change by connecting with representatives from countries such as England,  South Africa, India, and many others.  With the help of this international community, our common goal of prevention, education, and  advocacy are closer than ever.  The accomplishments of ADAO are an outstanding example of how  turning anger into action can be more beneficial than simply complaining.  All the volunteers involved  in ADAO have all gone through their own personal struggles which add personality to this organization  and fuel others to make a powerful change.  My personal story started at a very young age.  I was ten when my dad, Alan, was diagnosed  with Mesothelioma.  I had absolutely no idea what that word meant or even how to pronounce it.  After  coming home from summer camp, I was sat down at our kitchen table and told that Daddy had cancer,  but that he would be okay.  My parents did an incredible job of hiding the negative events going on in  our life and making my life go on with little change.  After a while and a few surgeries here and there,  my true life began to emerge.  My dad had one lung, and was hanging on with a thin string of hope,  which was my mom and me.  He passed away on May 22, 2006. It was the day of the season finale of our  favorite T.V. show, 24.  I was unable to finish that season with my father and realized that many other  unfinished things involving him would come in my future, such as my graduations and wedding.   Through this time in my life, however, my family was able to make a change in our government  as well as in the lives of other families.  When my mom and I went to D.C. for the first time, we  wandered the halls with a picture of my dad and me dancing together at a Bat  Mitzvah, asking to meet with representatives.  Obviously, we didn’t quite  understand how things worked in the legislative process.  All we had going for  us was the picture and my mom’s quote, “Every daughter deserves to dance  with her father at her wedding.”  But now, ADAO is able to call a Senator,  schedule an appointment, and talk to respected  officials with ease.  ADAO has deservedly earned  the title of a highly valued nonprofit volunteer organization.  The change  that has been made internally is visible and tangible.  I am proud to say that  I am a part of this wonderful organization and hope that the children of  victims will carry on this legacy for years to come.  It is very true that the  youth are our future and we are well aware of this fact.  I, personally, have  never been pressured to do anything asbestos‐related; I always do it out of  my own will.  My wish is for no family or individual to go through what my  family and countless others have had to face.    From individuals fighting for the truth and change to a large  organization with respect in the legislative community, this international  family has and will continue to represent and aid those affected by asbestos.  My passion for ADAO has  only increased over the years, as I am now eighteen years old and continue to support this organization  in every way possible.  Ignorance has never, and will never be, bliss.    


In Loving Memory of

Alan Reinstein 1939 – 2006 Unforgettable Husband and Father

Sweetly, we remember how you lived your life so deeply and without regrets. You loved us unconditionally. The broken shards of the past six years soften amongst 25 years of bliss and have become a cherished mosaic of memories. Our love for you is forever etched across our hearts, and we feel your love. Love, Linda and Emily


Bill Shields 1943-2004

Husband, Father, Friend

You are never forgotten and you were an inspiration in founding ADAO – so that all victims may have a voice. Your spirit still soars on the wings of a seagull, and our memories will always keep you alive in our hearts, minds and souls forever. From your loving family and friends


Joe Amento, Jr.  Environmental Asbestos Exposure 

1950‐2003 Ambler, PA 

Oh how our hearts ache to have you back home with us.  We miss you so much. You are in our hearts every single day.             Love,  Marilyn, Joey and Julie 


IN LOVING MEMORY

TODD HALL Lexington, KY

January 12, 1967 – December 4, 2006

Victim of Mesothelioma Missing you so much. Love, Mom, Dad, Greg, Amy & Taylor            

Front: Yvonne (Mom), Todd holding Taylor (niece), Paul (Dad)

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TRIBUTE TO EDMOND GRANT

For thirty years we were two halves of one person until exposure to asbestos dust developed into Mesothelioma and robbed you of your life, decades before your time. Ten years later, I am still half a person without you. Those who distribute and profit from asbestos in any form are no different than common drug dealers. The only difference is that you can recover from a drug addiction but asbestos exposure is far less forgiving…it’s deadly. We must ban asbestos and find a treatment and cure for future victims, in the names of those less fortunate who have gone innocently before them. Tim Devlin, Canada

HOPE    Itʹs magic and itʹs free,   Itʹs not in a prescription. Itʹs not in an IV.  It punctuates our laughter, It sparkles in our tears,  It simmers under sorrows, And dissipates our fears.   Do you know what Hope is? Itʹs reaching past today,  Itʹs dreaming of tomorrow, Itʹs trying a new way,  Itʹs pushing past impossible, Itʹs pounding on the door,  Itʹs questioning the answers, Itʹs always seeking more,  Itʹs rumors of a breakthrough, Itʹs whispers of a cure,  A rollercoaster ride of remedies, unsure.  Do you know what Hope is?   Itʹs candy for the soul,  Itʹs perfume for the spirit.  To share it, makes you whole.  ~ Author Unknown ~


No words on paper could ever describe my hero, a man of great  gentleness and passion. His loss is overwhelming and like far too  many others, it was unnecessary and avoidable. We had an  adventure all too short which left my family behind, but his legacy  was to unite the Mesothelioma groups and to Ban Asbestos.  It is with  great pride and honor we continue to do so, and with each tragedy  we remember our goal to fight to educate and end this useless  nightmare, and to create a world where no one has to suffer like our  families have.    The John McNamara Foundation is proud to work with ADAO and  applauds its tireless efforts to make this world a better place. One life  is too many.    Make memories that take your breath away.      TC McNamara 


In Memory of Alan Reinstein

We miss you every day! We take comfort in the knowledge that your warmth, humor, compassion and love of life live on in your amazing wife and daughter. We are lucky to have known you. You will forever be in our hearts! Keith, Tara, Meagan & Brett Jensen


Tribute to Bruce Arnold April 8, 1939 - June 5, 2010 Mendocino, CA

Bruce lost his two-year battle with pleural mesothelioma last June. He is forever in our hearts and memories. Bruce, We Love You and Miss You, Sue, Rand, Jennie & Kate, Kevin, Deana, Zoe & Kaelie, Larry & Sandy, and Barbara


Ronald D.Gersten,DDS 1935–2010

Mi ssi ng & Rememberi ng You –ADAO Fami ly


Ronald H. Diana 1946 -2005 Son, Brother, Husband, Father, Friend


In Memory of

Jeffrey Farnsworth  


In Memory of Alan Reinstein — My Friend and Colleague In Honor of Linda & Emily Reinstein for their wonderful work! Love, Carole Schlocker and Ellis Levin


James E “Doc” Robinson Jan 29th 1925 – March 17, 2005

Laughter through the Tears Forgive me Lord, I'll always weep For a Dad I loved, but could not keep. I remember the times of laughter, I remember the times of tears. These are the precious memories My heart will hold so dear. Gone are the days of sickness, Gone is the pain and fear. He's with his blessed Savior now For all the coming years. They are walking streets of Gold And communing hand in hand. His home is now in Heaven, That blessed promised land. So I'll dry my eyes and praise the Lord For the plan that He has made That takes us from this world of pain And brings a brighter day. I will cry when my heart needs to But I'll let laughter come again And I know that I'll be with him When God fulfills His plan. By Lynn Robinson And your loving family.


Stan “Swede” Grimberg April 18, 1929 – June 6, 1982 My Dad, Stan “Swede” Grimberg, was a hardworking, generous, and funny guy with a heart you could touch….. After he served his country in the Army during the Korean War, he came home and became an apprentice plumber. While working as an apprentice he was exposed to asbestos while mixing asbestos powder to apply it as insulation and as a fire retardant on piping. His exposure continued as a Journeyman Plumber. As a kid, I remember meeting him at the door when he’d come home, and his clothes would have a white powder on them. Years later, he told me he could not catch his breath after going up several flights of stairs. He immediately went to the Dr. and requested a chest x-ray. The x-ray showed a large dark area. The next day he was transferred to an oncologist at a hospital out of town. Upon arrival the Dr. drained fluid from his pleura. Asbestos fibers came back in the fluid and numerous tumors were identified on his pleura. The next day the surgeon opened him up for exploratory surgery, cutting every tumor, with the intent that the tumors would become vulnerable to the many chemotherapy drugs. He was told to get his affairs in order, and that he may live six months. He died five days before his granddaughters first birthday, of mesothelioma at age 53. He lived 18 months with “experimental” chemotherapy treatments. One of the drugs used was Cisplatin, a drug still used today. This demonstrates that not enough progress has been made regarding the treatment of this horrible and demoralizing disease. He died close to the age I am now, giving me a perspective on his suffering that I did not understand until this point in my life. In 2005 I was going through a box of documents and realized that my mother did not receive the compensation due her. After conducting some research, I found out that our state of Oregon has a law called the Statute of Repose, precluding those suffering from latent diseases from filing claims where injury was discovered past a certain statutory deadline. I attempted in 2005 to change that law, and am working on it again today…justice knows no timeline... In memory of my Dad, I recognize that not much has changed since I lost him 28 years ago. The treatments remain experimental, harsh, cause great suffering, and the injustice continues…The Asbestos Disease Awareness Organization gives me hope. Together we are raising awareness, supporting others who are fighting this disease, and working to ban this toxic substance. One of the last things my Dad said to me was “when you can’t breathe nothing else matters.” My Dad taught me to fight hard, and never ever give up, his life mattered. Love you Dad, and I miss you, more than words can say! Always & Forever…….your daughter, Ann


Salutes and Congratulates the

Asbestos Disease Awareness Organization for its

Continuing efforts on behalf of all asbestos victims and their families We are proud to support the

2011 Asbestos Awareness Conference 121 South Broad Street, 21st Floor Philadelphia, PA 19107 (215) 735-6677

5434 King Avenue, Suite 202 Pennsauken, NJ 08109 (856) 427-9527

1-877-743-4652 www.sheinlaw.com


Congratulations to the Asbestos Disease Awareness Organization For their 7th Annaul Asbestos Awareness Conference

www.adfero.com 1666 K Street, NW, Suite 250 Washington, D.C. 20006 (202) 333-4444 Phone (202) 333-3231 Fax


Baron & Budd, P.C. is proud to be a gold sponsor of

Asbestos Disease Awareness Organization’s 7th Annual International Asbestos Awareness Conference. the

We support ADAO’s efforts to ban asbestos.

Protecting What’s Right ® w w w . m e s o t h e l i o m a n e w s . c o m

Dallas, TX (main office), Los Angeles, CA, Miami, FL, Austin, TX, Baton Rouge, LA

1.866.855.1229


Motley Rice attorneys have a long history fighting for the rights of workers and their loved ones who have suffered due to asbestos-related diseases.

We proudly support the Asbestos Disease Awareness Organization’s international efforts toward improved rights and protections for asbestos victims.

www.motleyrice.com 1.800.923.4237 28 BRIDGESIDE BLVD. MT. PLEASANT, SC 29464 CA | CT | DC | NY | RI | SC | WV

Anne M. Kearse (SC) and Kevin Dean (SC, GA) are the attorneys responsible for this communication. Motley Rice LLP operates the California office.


THE INTERNATIONAL ASSOCIATION OF HEAT AND FROST INSULATORS AND ALLIED WORKERS Salutes

The Asbestos Disease Awareness Organization Our organization is proud to support the

7th Annual Asbestos Awareness Conference And We join with them in their efforts to end Asbestos exposure and support the good doctors working to find a cure.

JAMES A. GROGAN

JAMES P. McCOURT

General President

General Secretary-Treasurer

INTERNATIONAL VICE PRESIDENTS William Mahoney Kenneth Schneider Fred DeMartino

Terry Lynch Doug Gamble Terry Larkin Greg Revard

Fred Clare Mark Selby Vince Engel

INTERNATIONAL REPRESENTATIVES Robert Hall

Eugene Leclerc

Tom Haun

Affiliated with the AFL-CIO, Building and Construction Trades Department, Metal Trades Department and Canadian Labour Congress


Dedicated to mesothelioma  victims and their families    Offices in:   ILLINOIS   MISSOURI   SOUTH CAROLINA 

800-358-5922


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Congratulations!! to ADAO, Linda Reinstein, Doug Larkin and all volunteers who make this conference a success.

As a  Meso  survivor,  a  phone  volunteer  at  MDAnderson  Network  and  Bloc  Cancer  Center  for  over  20  years,  I  have  had  the  wonderful  opportunity  to  meet  many  Meso  families.  The  Mesothelioma  Listserv  on ACOR’s website has also been a great source of information, support  and meeting of lasting relationships from sharing in the War on Meso.  My  husband  Bud  and  I  would  like  to  honor  the  Caregivers  and  Meso  Warriors who are fighting. And, to the memory of those Meso friends  that have gone on before us … 

"Another songbird falls silent on Earth,  And in the heavens another star   Blinks into existence   In the evening skies   To help light the way for the rest of us."   Jill “^j^illypooo” Vaughn


GLOBAL ASBESTOS AW ARENESS W EEK 1–7APRIL2011 Joi n us as we s pr ead awar enes s aboutt hi sdeadl y car ci nogen and s eewhatapower f ulf or cewecan bewhenwewor kt oget her .


GBAN GLOBALBAN ASBESTOSNETW ORK COMMUNI CATI ON. COLLABORATI ON. ACTI ON s oci almedi acommuni t y

The Gl obalBan As bes t os Net wor k( GBAN) Soci alMedi a Communi t yi s a nonpr oďŹ t an i ndependenti ni t i at i ve es t abl i s hed t o pr omot e and f aci l i t at e col l abor at i on, communi cat i on, and act i on t o achi eve a gl obalas bes t osban. GBAN i saones t oppor t alt hatbr i ngst oget her i nt er act i ves oci almedi aout l et st o pr omot ean end t o as bes t osmi ni ng and us e,t her ebypr event i ng cont i nued expos ur et o t hi s known humancar ci nogen.

www. gban. net www. f acebook. com/gbanAs bes t os


ʺUnited for Asbestos Disease  Awareness, Education, Advocacy,  and Community Supportʺ         

The Asbestos Disease Awareness Organization    ʺUnited for Asbestos Disease Awareness, Education, Advocacy, and Community Supportʺ 

1525 Aviation Boulevard, Suite 318 • Redondo Beach • California • 90278 • 310.251.7477    Registered 501(c) (3) nonprofit organization    www.AsbestosDiseaseAwareness.org


Asbestos Disease Awareness Organization (ADAO) would like to honor one of our most dedicated volunteers

Herman Hamilton Herman is ADAO’s tireless Executive Assistant, who enables ADAO to realize our mission and vision. His dedication to our mission is amazing, especially in light of the fact that he has not personally lost a loved one from asbestos-related disease. Yet Herman so firmly believes in our mission that he became a volunteer shortly after ADAO’s inception. Herman is a heroic veteran who is very dedicated to his daughters and extended family. As an adept carpenter, he often crafts beautiful wooden furniture for his daughters. As the Executive Assistant for ADAO, he not only works with Linda Reinstein on strategic planning and global ban asbestos efforts, but also coordinates the venue, hotel reservations, and flight arrangements for each of our International Asbestos Awareness Conferences. Herman is a gifted writer and collaborates every month on the ADAO eNewsletter. In addition, Herman has often visited Congressional offices with our team. He is an excellent spokesperson – well-versed in asbestos-related diseases, treatments, funding, and related legislation. His passion for politics has proved a great asset to ADAO. During a recent family crisis, Herman was there for his family in their time of extreme need, but he never turned his back on ADAO. Somehow, he still managed to do his job for us and did it especially well. Herman is not usually able to attend our conferences in spite of all his endeavors to make each one successful. So, if you know Herman, and even if you don’t, give him a pat on the back or send him an email at Herman@asbestosdiseaseawareness.org and let him know how much he means to ADAO, asbestos disease victims, and caregivers. We, your ADAO family, love you, Herman. Thank you for all that you do and who you are.


The Facebook Community joins the Asbestos Disease Awareness Organization In

Global Asbestos Awareness Week April 1- 7, 2011


With gratitude to Asbestos Disease Awareness Organization for its national and global efforts in advocacy, community, and education!

In unity and solidarity, ZeelTV www.zeeltv.com


THE

MESOTHELIOMA APPLIED RESEARCH FOUNDATION is proud to honor

LINDA REINSTEIN with the Bruce Vento Hope Builder Award for her national and international advocacy to ban asbestos and raise awareness of the tragic effects of this dangerous substance. The Mesothelioma Applied Research Foundation recognizes that a ban on asbestos paired with Meso Foundation’s independent peer review research program, which is aimed at improving medical treatments and developing a cure, are essential elements in ending suffering caused by mesothelioma.

The Bruce Vento Hope Builder Award will be presented in Washington, DC on June 24, 2011 during the Gala Dinner at the International Symposium on Malignant Mesothelioma. For more information visit:

www.curemeso.org


Demonstrating Auditing and Regulatory Requirements for

INDEPENDENT ASBESTOS TRAINING PROVIDERS

In support of ADAO’s initiative of the Global Asbestos Awareness Week on April 1–7, 2011

Independent Asbestos Training Providers (IATP) www.iatp.org.uk


"Regulations don’t kill jobs; employers pay for of their safety crimes. And unions commit themselves organise for safe and healthy work. lack regulations kill toworkers" – Hazards Magazine (UK)


In Appreciation for ADAO’s Steadfast Leadership and Advocacy as the leading Voice of the Victims & for ADAO’s support of APHA’s Policy Resolution calling for the Elimination of Asbestos.

In solidarity, Occupational Health & Safety Section American Public Health Association


The 11th International Conference of the International Mesothelioma Interest Group

Sept. 12-15, 2012 Boston, MA, USA Conference chairs: Drs. Raphael Bueno & David J. Sugarbaker http://imig.org/


“BREATHTAKING” A personal investigation into the present-day use of asbestos A film tribute to my father Richard Mullen who died of Mesothelioma Sept. 29, 2003

“Whenever I told someone I was making a film about my father and his exposure to asbestos they would always respond with a personal account of their own. I soon realized that this story was a lot bigger than just my own family’s.” - Kathleen Mullen, Director of Breathtaking

Watch for the ADAO screening in the fall! For more information contact breathtakingfilm@gmail.com www.kathleenmullen.com/breathtaking/


m.

Delivering asbestos disease awareness information to the world‌.

Asbestos Disease Awareness Organization TV Available now at adaotv.com

Viewers anywhere in the world can now access ADAO’s Asbestos Video Library 24 hours a day, 365 days a year, from any internet connected computer. The library currently includes all sessions of the 2007, 2008,2009, and 2010 Asbestos Disease Awareness Conferences and will contain all of the sessions from the 2011 Asbestos Disease Awareness Conference as well.

ADAO TV is powered by ZeelTV On the web at www.zeeltv.com


Conference Notes ________________________________________________________________________ ________________________________________________________________________ ________________________________________________________________________ ________________________________________________________________________ ________________________________________________________________________ ________________________________________________________________________ ________________________________________________________________________ ________________________________________________________________________ ________________________________________________________________________ ________________________________________________________________________ ________________________________________________________________________ ________________________________________________________________________ ________________________________________________________________________ ________________________________________________________________________

The Asbestos Disease Awareness Organization 1525 Aviation Boulevard, Suite 318 • Redondo Beach • California • 90278 • 310.251.7477 “United for Asbestos Disease Awareness, Education, Advocacy, Prevention, and Community Support.” www.AsbestosDiseaseAwareness.org


ADAO

I NTEGRATI VESOCI ALMEDI ANETWORK

WEBSI TES • As bes t osDi s ea s eAwa r enes sOr ga ni z a t i on( ADAO) : www. a da o. us • Gl oba l Ba nAs bes t osNet wor k( GBAN) : www. gba n. net • Ba nAs bes t os : www. ba na s bes t os . us

FACEBOOKORGANI ZATI ONALPAGES • 2010ADAONewht t p: / / www. f a c ebook . c om/ ADAOAs bes t os • 2010GBANht t p: / / www. f a c ebook . c om/ gba nAs bes t os • 2011Gl oba l As bes t osAwa r enes sWeekCommi t t eeht t p: / / on. f b. me/ hs GDqe • 2011" T ur ni ngAngeri nt oAc t i on"ht t p: / / on. f b. me/ dF pz 2c • 2010“ Voi c esont heWa l l ”Ca mpa i gnht t p: / / on. f b. me/ i j NOk A • 2008ADAOGr oup–ol dht t p: / / www. f a c ebook . c om/ gr oup. php? gi d=111054215113

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2011 Asbestos Disease Awareness Organization International Asbestos Awareness Conference Program  

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2011 Asbestos Disease Awareness Organization International Asbestos Awareness Conference Program  

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