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Asbestos Disease Awareness Organization Barbara Ann Karmanos Cancer Institute International Ban Asbestos Secretariat

6th Annual International Asbestos Awareness Conference Global Mission: Action to Prevent, Detect and Treat Asbestos-Related Diseases Science and Technology Proves Asbestos is a Carcinogen Chicago, Illinois

Friday, April 9 Support Gathering for Patients, Family & Caregivers 5:00 – 6:00 p.m. Friday, April 9 Meet and Greet with Jordan Zevon 7:00 – 9:00 p.m. Saturday, April 10 Conference 8:00 a.m. – 5:00 p.m. Sunday, April 11 Unity and Remembrance Brunch 9:30 – 11:30 a.m.


ADAO 2010 Conference    Global Mission: Action to Prevent, Detect and Treat Asbestos-Related Diseases Science and Technology Proves Asbestos is a Carcinogen 8:00 - 8:30

Registration and Continental Breakfast Welcome and Opening Remarks

8:30 - 8:40

Welcome: Linda Reinstein, ADAO Executive Director and Co-Founder

8:40 - 8:45

Arthur Frank, MD, PhD and Richard Lemen, PhD, MSPH

8:45 - 8:50

Michael Harbut, MD, MPH, FCCP, Barbara Ann Karmanos Cancer Institute

8:50 - 8:55

Laurie Kazan-Allen, Founder and Coordinator, International Ban Asbestos Secretariat (IBAS)

Session I

Prevention, Still Our Only Cure - Chairperson: Laurie Kazan - Allen, IBAS

8:55 - 9:15

Asbestos is a Proven Carcinogen, James Webber, PhD

9:15 - 9:30

Identifying Asbestos in Your Home, Workplace and Beyond, Sean Fitzgerald PG

9:30 - 9:45

Case Study, Asbestos Scandal on Illinois State Beach, Jeff Camplin

9:45 - 10:00

21st Century Progress in Protecting Workers, Terry Lynch, Int'l Vice President, Insulators Union

10:00 - 10:10

Injustice for All: A State Crime of Omission Beneath the Steps of the United States Capitol, Patrick Gerkin

10:10 - 10: 25

Panel Q & A, Moderator Laurie Kazan - Allen, IBAS

10:25 - 10:40

Break

Session II

Advances in Diagnosis and Treatment of ARD - Chairperson: Richard Lemen, PhD, MSPH

10:40 - 11:00

CARD Clinic, Working Model for ARD Treatment Centers, Brad Black, MD

11:00 - 11:20

Non-Malignant ARD, Michael Harbut, M.D., MPH, FCCP

11:20 - 11: 40

Malignant Mesothelioma, Hedy Lee Kindler, MD

11:40 - 11:55

Panel Q & A, Moderator Richard Lemen, PhD, MSPH

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, Prevention, Support and a Cure" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.437.3886 www.AsbestosDiseaseAwareness.org


11:55 - 12:20

ADAO Asbestos Awareness Day Conference Awards The Honorable Richard Durbin, United States Senator, Tribute of Hope Dr. Hedy Kindler, Dr. Irving Selikoff Lifetime Achievement Award Center for Asbestos-Related Diseases, Libby, MT, Tribute of Unity Award Fernanda Giannasi, Tribute of Inspiration Award Army Archerd, honored posthumously, Warren Zevon “Keep me in Your Heart” Memorial Tribute June Breit, honored posthumously, The Alan Reinstein Memorial Tribute ADAO Presentation to the Center for Asbestos-Related Diseases ADAO Presidential Volunteer Service Awards Presentation

12:20 - 12:50

Jordan Barab, Deputy Assistant Secretary, Occupational Safety and Health Administration

12:50 - 1:55

Lunch

Session III

Resources for Patients and Families – Chairperson: Michael Harbut, M.D., MPH, FCCP

2:00- 2:20 2:20 - 2:40

Resources for Patients and Families QOL, Kimberly Rowse and Tanis Hernandez Patient Empowerment: Developing Your Holistic Treatment Plan, Linda Reinstein, ADAO Executive Director and Co-Founder

2:40 - 3:00

Panel Q & A, Moderator Michael Harbut, M.D., MPH, FCCP and Hedy Lee Kindler, MD

3:00 - 3:15

Break

Session IV

Global Advocacy and the Continuing Crisis - Chairperson: Arthur L. Frank, MD, PhD

3:15 - 3:35

Latin America’s Asbestos Struggle!, Fernanda Giannasi, Brazil

3:35 - 3:50

Canadian Asbestos: A Global Concern, Canadian Member of Parliament, Nathan Cullen

3:50 - 4:05

Governmental Agencies Role in Protecting Public Health, Richard Lemen, PhD, MSPH

4:05 - 4:20

Progress Update: The Americas, Barry Castleman, ScD

4:20 - 4:35

A Victims’ Call to Action!, Laurie Kazan-Allen, International Ban Asbestos Secretariat (IBAS)

4:35 - 4:45

Panel Q & A, Moderator Arthur: L. Frank, MD, PhD

Session V

Concluding Session

4:45 - 5:00

Linda Reinstein, Dr. Michael Harbut, and Laurie Kazan-Allen

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, Prevention, Support and a Cure" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.437.3886 www.AsbestosDiseaseAwareness.org


Dear Registrants, Speakers, Honorees, Sponsors, Volunteers and Guests: On behalf of everyone at the Asbestos Disease Awareness Organization, I welcome you to the Windy City and our 6th International Asbestos Awareness Conference. We sincerely thank each of you for selflessly giving your time, expertise, and support during the past year. You have helped us expand our educational, community support, and advocacy efforts that touch the hearts and minds of people throughout the nation and around the world. Since 2004, ADAO has made significant advances in asbestos disease awareness, and the success of our conference is a reflection of your dedication. This conference would not be possible without the hard work of many volunteers. Thanks go out to Bonnie Diana, Asbestos Awareness Conference chair and the entire AAC committee who have worked for nearly a year to make this event a reality. Three important volunteers who are unable to attend our conference also deserve special recognition for their support and dedication to ADAO: Ellen, our Webmaster; Margy, our National Director; and Herman, our Executive Assistant. We are also thankful to have a man of great distinction, who is quietly humble, enormously gifted, and possesses a kindness beyond belief as our National Spokesperson for ADAO: Jordan Zevon. We gather together at this time every year because Asbestos Awareness Week offers a beacon of hope for hundreds of thousands of current and future victims of asbestos diseases. ADAO is pleased that the United States Senate and House of Representatives have acknowledged the severity of the public health risk that asbestos poses in the United States and around the world. We strongly encourage Congress to build on the momentum of this week and this conference by promptly enacting a complete ban on asbestos. That is the only way we can hope to eliminate this insidious epidemic. Thank you for joining us today.

We can’t change history, but knowledge is stronger than asbestos

and gives hope for the future. In unity, Linda Reinstein Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, Prevention, Support and a Cure" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.437.3886 www.AsbestosDiseaseAwareness.org


ADAO Science Advisory Board Science Advisory Board Co-Chairmen

Arthur Frank, MD, PhD Richard Lemen, PhD, MSPH

Science Advisory Board Members

Brad Black, MD Barry Castleman, ScD Ron Dodson, PhD Raja Flores, MD Michael Harbut, MD, MPH, FCCP Hedy Kindler, MD Steven Levin, MD


2010 Asbestos Awareness Conference Speakers and Honorees Biographies Jordan Barb, Deputy Assistant Secretary for Occupational Safety and Health Administration Jordan Barab joined OSHA as Deputy Assistant Secretary of Labor for Occupational Safety and Health on April 13, 2009. He previously served as Special Assistant to the Assistant Secretary of Labor for OSHA from 1998 to 2001, when he helped the Agency to promulgate the ergonomics workplace safety and health standard that was repealed by Congress in March 2001. For the House Education and Labor Committee, he was Senior Labor Policy Advisor for health and safety from 2007 to April 2009. Mr. Barab worked on workplace safety issues for the U.S. Chemical Safety and Hazard Investigation Board from 2002 to 2007; he was a Health and Safety Specialist for the AFL-CIO from 2001 to 2002; and he directed the safety and health program for the American Federation of State, County and Municipal Employees from 1982 to 1998. He also created and wrote the award-winning weblog, Confined Space, from 2003 to 2007. He holds a master's degree from The Johns Hopkins University and an undergraduate degree from Claremont McKenna College.

Dr. Brad Black, MD, Director of Center for Asbestos Related Disease Dr. Black has been a leading advocate for healthcare, treatment, and research to benefit those impacted by Libby amphibole asbestos. A pediatrician by specialty, he additionally spent 10 years as the Medical Director for the urgent care center and as an emergency room physician. Since 2000, emerging out of his role as County Health Officer, Dr. Black has become dedicated to developing the healthcare infrastructure for asbestos related disease healthcare, including the planning and implementation of the original ATSDR screening program and the developing the CARD. The Libby medical community believes in the importance of the CARD for specialized care and research efforts. Dr. Black brings to Libby a level of experience, enthusiasm, and dedication that is appreciated greatly by the CARD as well as the community.

Jeffery C. Camplin, MS, CSP, CPEA, is President of Camplin Environmental Services, Inc., a safety and environmental consulting firm he founded in 1990. Jeff was one of the first licensed asbestos professionals in the State of Illinois and has been teaching USEPA accredited asbestos training classes since 1987. He has been been a consultant for the Illinois Dunesland Preservation Society since 2003, working to bring resolution to the decades of asbestos contamination found on the entire Illinois Lake Michigan shoreline. Jeff has also worked with the Society to hold the polluters, including state and federal agencies, accountable for issuing rigged studies to downplay the significance of this chronic pollution.

Barry Castleman, ScD, is an Environmental Consultant trained in chemical and environmental engineering. He holds a Doctor of Science degree from the Johns Hopkins School of Public Health. He has been a consultant to numerous agencies of the US government and other governments, international bodies, and environmental groups dealing with a wide range of public health issues. He has testified as an expert in civil litigation in the US, on the history of asbestos as a public health problem and the reasons for failures to properly control asbestos hazards. Dr. Castleman has spent the past 35 years working on asbestos as a public health problem

The Asbestos Disease Awareness Organization 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.437.3886 “United for Asbestos Disease Awareness, Education, Advocacy, Prevention, Support and a Cure.” www.AsbestosDiseaseAwareness.org


2010 Asbestos Awareness Conference Speakers and Honorees Biographies Nathan Cullen, Member of Parliament, Skeena-Bulkey Valley, British Columbia, Canada. Nathan was first elected in the Northwestern BC riding of Skeena-Bulkley Valley in 2004 and has since been re-elected twice with the support of nearly fifty percent of the votes cast. He has been the advocate for the Environment and Parks for the New Democrats and recently took over the Energy and Natural Resources portfolio. He also chairs the Green Economy Caucus for the NDP working on ways to help create employment while meeting our responsibilities to the planet’s future generations. In his first year he was voted ‘Rookie of the Year’ by his fellow Parliamentarians and later awarded the President’s Award from the USA in 2004 among just 15 individuals from around the world. Before elected life he was a small business owner and community organizer in Northwestern BC. His expertise was in strategic planning and resolving conflicts for businesses, government and non-profit agencies throughout the province. He lives with his wife, Diana, in Smithers and when time allows is a sport and outdoor enthusiast.

Sean Fitzgerald, P.G. President, Scientific Analytical Institute, Inc. Mr. Fitzgerald is a professional geologist and microscopist with over 20 years experience managing growing businesses and laboratories across the country. He has been guest speaker at asbestos workshops and conferences as well as local, state, and federal regulatory meetings and reviews, and advises private and governmental entities on issues of asbestos regulation, science, and process development. Mr. Fitzgerald has been retained and has given testimony as an expert researcher on asbestos in soils, naturally occurring asbestos, and asbestos in household products, with his work appearing before English Parliament and the US Senate. He has spoken on asbestos issues before the Environmental Information Association (EIA- formerly the National Asbestos Council: NAC), American Society for Testing Materials (ASTM International), and at the National Press Club in Washington, DC.

Arthur L. Frank, PhD, MD is co-chair of ADAO's Science Advisory Board and serves as Professor of Public Health and Chair of the Department of Environmental and Occupational Medicine at the Drexel University School of Public Health in Philadelphia. Trained in both occupational medicine and internal medicine, Dr. Frank has been interested in the health hazards of asbestos for more than 35 years. He has published extensively on the hazards of asbestos, and clinically cared for asbestos effected patients. He has lectured internationally about the problems of asbestos, and worked in many settings looking at the diseases caused by this material.

Patrick Gerkin, Ph.D. is an assistant professor at Grand Valley State University. He earned his Ph.D. in Sociology from Western Michigan University (WMU) in 2006, with emphasis in criminology and race and ethnic relations. Dr. Gerkin joined the faculty of Grand Valley State University in 2007 where he teaches courses on Criminology, Research Methods, and Culture, Crime, and Justice issues in the School of Criminal Justice.

The Asbestos Disease Awareness Organization 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.437.3886 “United for Asbestos Disease Awareness, Education, Advocacy, Prevention, Support and a Cure.” www.AsbestosDiseaseAwareness.org


2010 Asbestos Awareness Conference Speakers and Honorees Biographies Fernanda Giannasi, ABREA, Civil and Safety and Heath Engineer. Fernanda Giannasi has been a Federal Factory Inspector in Brazil since 1983. During that time she has become a specialist in issues relating to asbestos, nuclear energy and other toxics and carcinogens such as silica. Having been exiled to Osasco in 1995, Ms. Giannasi became aware of a number of cases of asbestos disease amongst the local population. In collaboration with former workers from the Osasco asbestos-cement factories, whom she came to know during her inspections of Eternit’s plant during the 1980s, she began an investigation into the incidence of asbestosrelated diseases in the city. She was a founding member of an organization – ABREA – that was set up in 1995 to act as the voice for Brazil’s asbestos victims. For her work on behalf of Brazil’s asbestos victims, she has received death threats and been sued by Brazilian asbestos stakeholders. She has also been honoured by various groups in Brazil, the U.S., Japan, and Canada.

Michael R. Harbut, MD, MPH, FCCP is Chief of the Center for Occupational and Environmental Medicine: Clinical Assistant Professor, Wayne State University, School of Medicine, Detroit, Michigan. An Internationally known expert in the diagnosis and treatment of environmental and workplace diseases Dr. Harbut has been named co-Director of the National Center for Vermiculite and Asbestos Related Cancers. He is the co-author of the American Thoracic Society’s 2004 Recommendations for the Diagnosis and Treatment of Non-Malignant Disease Caused by Asbestos Exposure. Dr. Harbut is a past chair of the occupational and environmental health section of the American College of Chest Physicians and has served on the Board of Directors of the Mesothelioma Applied Research Foundation. Dr. Harbut brings his expertise to address the need for early diagnosis and aggressive treatment of asbestos related diseases.

Tanis Hernandez, LCSW Outreach Coordinator, Center for Asbestos Related Disease Tanis is the Outreach Coordinator at the CARD and has contributed her talents since December of 2002. She is a licensed clinical social worker and has been one of the primary individuals involved in addressing the psychological and social needs of the Libby community related to asbestos exposure and it's health impacts. Tanis was born and raised in northwest Montana and completed her undergraduate degree at the University of Montana and her Masters through the Missoula campus of Walla Walla College. She moved to Libby in 2000. She has extensive experience in assisting, supporting and counseling individuals, families and communities regarding chronic health and mental health issues. Tanis also coordinates all community outreach and education activities at the CARD.

Laurie Kazan-Allen is the Founder and Co-coordinator of the International Ban Asbestos Secretariat (IBAS), an independent body set up in 1999 to campaign for a global ban on asbestos and justice for all asbestos victims. As the editor and publisher of the British Asbestos Newsletter, she has been writing about international asbestos issues for more than 15 years. Ms. Kazan-Allen is an adviser to the UK All Party Parliamentary Group on Occupational Safety and Health. In 2008, she organized and/or participated in asbestos events in Egypt, Austria, Brazil England, the U.S, Slovenia, South Korea and Hong Kong; the same year, she co-edited the monograph: India’s Asbestos Time Bomb. .

The Asbestos Disease Awareness Organization 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.437.3886 “United for Asbestos Disease Awareness, Education, Advocacy, Prevention, Support and a Cure.” www.AsbestosDiseaseAwareness.org


2010 Asbestos Awareness Conference Speakers and Honorees Biographies Hedy Lee Kindler, MD, an Associate Professor of Medicine at the University of Chicago Cancer Research Center, is an internationally recognized expert on new drug development for malignant mesothelioma (a cancer of the lining of the lungs and abdomen that is caused by asbestos) and pancreatic cancer. She is the President of the International Mesothelioma Interest Group (iMig), and the Mesothelioma Cadre Leader in the Cancer and Leukemia Group B, a national cooperative cancer research clinical trials group. Dr. Kindler has been listed repeatedly in Best Doctors in America, America’s Top Physicians, and America’s Top Doctors for Cancer

Doug Larkin is the Communications Director and Co-Founder of Asbestos Disease Awareness Organization (ADAO) – which works to help raise awareness about asbestos related diseases, while serving as a global community for asbestos victims and their families. Doug holds a B.A. in political science from Muskingum College, New Concord, Ohio. “Congress responds to their constituents. It’s through your letters, phone calls, stories, and donations to ADAO, that enables us to advocate fair and just legislation for present and future victims. That is the power of grassroots.” Doug has worked tirelessly behind the scenes to advocate fair and just legislation to present to Congress. Doug’s father-in-law William D. Shields was a victim of mesothelioma.

Richard Lemen, PhD, is co-chair of ADAO's Science Advisory committee. Dr. Lemen has recently been appointed by President Obama to the Presidential Advisory Board on Radiation and Worker Health. He is a former Assistant Surgeon General of the United States and also served as the Acting Director and the Deputy Director of the National Institute for Occupational Safety and Health before his retirement. He has been a practicing epidemiologist for more than thirty years and has taught graduate level classes on environmental and occupational health issues, including asbestos, at the Rollins School of Public Health at Emory University in Atlanta, Georgia. He has also testified in litigation on behalf of asbestos victims, Dr. Lemen is a worldrenowned author, speaker, and lecturer on this topic.

Terry Lynch is the International Vice-President, Political and Legislative Director and Health Hazard Administrator for the International Association of Heat and Frost Insulators and Allied Workers. He is also a Director of the Pacific Heart Lung & Blood Institute. Mr. Lynch holds a Bachelor of Arts degree from Northern Illinois University. He started his career in 1970 as an apprentice insulator with Asbestos Workers Local 17 in Chicago. He became a journeyman in 1974. He has served in various positions in the union trying to make a better life for fellow Union members and their families. Terry comes from a pipe covering family which includes his grandfather, father, uncle, brother and many cousins as well as his son Jason, who is a fourth generation pipe coverer. He is a member and past Admiral of the Pirates, a group of Union Labor and Management people, in Northwest Indiana dedicated to helping special children. Terry has been married for 40 years to his wife, Denise. They have one son, Jason, and one grandson, Connor Terrence

The Asbestos Disease Awareness Organization 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.437.3886 “United for Asbestos Disease Awareness, Education, Advocacy, Prevention, Support and a Cure.” www.AsbestosDiseaseAwareness.org


2010 Asbestos Awareness Conference Speakers and Honorees Biographies Linda Reinstein is the President/CEO and Co-Founder of Asbestos Disease Awareness Organization (ADAO). Reinstein became an activist after her husband, Alan, was diagnosed with mesothelioma in 2003. She co-founded the Asbestos Disease Awareness Organization (ADAO) in 2004 where she currently serves as President and CEO. ADAO unites experts, advocates, and individuals affected by asbestos-related diseases worldwide, giving a voice to the victims. Reinstein has written and produced educational materials including the slideshow “Asbestos Kills,” “Asbestos: The Dust, Disease, and Death,” and ADAOs’ expanding online resource center. A highly sought-after speaker, Reinstein frequently serves as Congressional witness and has presented in Japan, Thailand, Holland, Hong Kong, the United Kingdom, before the British House of Commons, as well as at conferences and meetings nationwide. Specializing in leveraging social networks and new media, Reinstein continues to work domestically and internationally to increase public awareness of asbestos, develop campaigns to prevent asbestos exposure, ban asbestos, and fund research for a cure.

Kimberly Rowse, RN Clinical Coordinator, Center for Asbestos Related Disease Kimberly began her position as Clinical Coordinator at CARD in mid-July of 2004. She brings with her over fourteen years of clinical experience in a variety of capacities, including nine years of administration. Kimberly's clinical expertise includes many years as a critical care nurse and brings an established network of professional resources through her work experiences. Kimberly's professional experience includes grant writing, start-up and program development including the implementation and maintenance of clinical programs that ensure quality care for patients. Not only is Kimberly the Clinical Coordinator, she also is the primary Clinical Nurse who provides day-to-day services for patients. Kimberly and her husband Peter, who is a family nurse practitioner in the Libby community, have lived in the area for over ten years and make their home in the Yaak.

Jordan Summers is the songwriter and keyboardist for the band ALL DAY SUCKER as well as New West recording artist Jordan Zevon. Summers co-produced and co-wrote Zevon’s debut album, Insides Out to much critical acclaim. Summers and Zevon, along with All Day Sucker front man Morty Coyle also won best song in the Pop category and grand prize over all in the prestigious U.S.A. Songwriting Competition for their song Home, a touching love song to Jordan Zevon’s late father, Warren Zevon. “The Jordans” previously took first prize in the Pop category in The U.S.A. Songwriting Competition for their original song The Joke’s On Me, which they performed on Late Night with David Letterman.

James S. Webber, PhD, is a Research Scientist with the New York State Department of Health’s Wadsworth Center, and an Assistant Professor in the School of Public Health of the State University of New York at Albany. He is Chair of ASTM Committee D22, which writes consensus standards for asbestos analysis, and is Secretary of the US Technical Advisory Group to ISO, where international asbestos methods are developed. He has served as the leader of two EPA peer review panels and is a member of the EPA Science Advisory Board Asbestos Panel. His research has focused on detection of asbestos in unconventional environments as indicators of asbestos contamination in time and space. He is author of more than two dozen peer-reviewed papers on asbestos.

Jordan Zevon, ADAO's tremendous National Spokesman, is a teacher, singer, and songwriter. Jordan was executive producer of his father, Warren Zevon's, final album The Wind. He also co-produced "Enjoy Every Sandwich: The Songs of Warren Zevon" which features an all-Star cast of singers and musicians. Jordan recently released his own EP entitled Jordan Zevon which is available from CDBaby.com. Jordan's immeasurable commitment to asbestos victims and concerned citizens has provided a united voice that will continue to help ensure that their rights are fairly represented and protected, while raising public awareness about the dangers of asbestos exposure and often deadly asbestos related diseases.

The Asbestos Disease Awareness Organization 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.437.3886 “United for Asbestos Disease Awareness, Education, Advocacy, Prevention, Support and a Cure.” www.AsbestosDiseaseAwareness.org


ADAO Leadership Volunteers Bonnie Carlson Diana is the events Chair for the 2010 Asbestos Awareness Conference and has participated with the annual conference since 2006. Bonnie’s husband, Ronald H. Diana passed away from Mesothelioma in 2005 and with this life changing experience began Bonnie’s introduction to the issues surrounding asbestos, her commitment to a passing of a Ban Asbestos bill in the United States, and volunteering for ADAO. Bonnie and her husband Ron, have a daughter Kate, who along with family friend, Caitlin Burton have all dedicated themselves towards raising awareness regarding asbestos issues. Bonnie has a M.A.T.; Master of Arts in Teaching in art education and currently resides in the arts community of Woodstock, NY where she also serves on the board of the Woodstock Artists Association and Museum.

Herman Hamilton, Executive Assistant of ADAO, first became familiar with the medical and legal aspects of Asbestos as a result of meeting his neighbor and now long time friend of 25 years, Dr. Barry Castleman. Herman joined ADAO in January of 05 as the Veterans Representative before moving on to Assist Linda in the day-to-day operations of ADAO. Among his many duties he has been a liaison for other like-minded asbestos groups, works with Congressional staffers to set up meetings regarding ongoing legislation and everything in between. His proudest accomplishment has been his work to defeat the Asbestos Trust Fund. The goal he would like to achieve the most is the passage of legislation for a total ban of Asbestos. It’s been a perfect fit, ever since. Outside of ADAO, Herman has served on the Board of Directors of Legal Aid Bureau of Maryland for the past 8 years and counting.

Ellen Tunkelrott, Webmaster, is a Contract and Grant Administrator for the original think tank, and resides in Redondo Beach, California. She became friends with Linda and Alan Reinstein through local community volunteer activity. Linda and Ellen collaboratively brainstormed the virtual non-profit site www.asbestosdiseaseawareness.org, and Ellen developed the original site based on the concepts and direction from those sessions. She has a B.A. in Psychology from California State University, Long Beach, and an MBA from Loyola Marymount University. She is a Certified Paralegal and is licensed by the County of Los Angeles as a Legal Document Assistant. She is self-taught in web design and development. In her spare time, Ellen is an avid photographer, gardener and is a magician member of the prestigious Academy of Magical Arts, located in the world renowned Magic Castle in Hollywood, California

Margy Urnberg, ADAO National Representative Director, is a former resident of Libby, Montana. Her father, Ronald Johnson, went to work at Zonolite in 1959 as a laborer on the same crew as Les Skramstead. Mr. Johnson’s health started failing in the mid 1960’s and he died from mesothelioma in 1987. During her Jr. & High school years Margy waited for the school bus at the bottom of Zonolite mountain across from the screening plant located on the Kootenai River where the Ute trucks brought the ore to be shipped. She became an outspoken activist when Andrew Schneider printed his series “An Uncivil Action” in 1999. She wrote several letters to fellow 1966 LHS graduate Marc Racicot, then governor of Montana, to help the community in Libby. The response was sadly lacking. In 2004 Margy joined ADAO as a representative for Nevada to help ban asbestos and bring awareness. In July 2009 Margy was diagnosed with asbestosis. To honor the memory of those lost, Margy hosts the ADAO Memorial Tribute pages.

The Asbestos Disease Awareness Organization 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.437.3886 “United for Asbestos Disease Awareness, Education, Advocacy, Prevention, Support and a Cure.” www.AsbestosDiseaseAwareness.org


ADAO Committee Chairs Marilyn Amento is ADAO's State Representative for Pennsylvania and Family Tribute Chair. Marilyn is the widow of Joe Amento, Jr. who died of mesothelioma at the age of 53, only 6 months after his first symptom. Joe was exposed to asbestos approximately 40 years prior while visiting his dad at one of the several asbestos plants in the small Borough of Ambler, a Philadelphia suburb. Marilyn is also the mother of teens. She channels her grief and anger with the asbestos industry by working with ADAO, and educating the public, government officials, and the medical community about the harmful effects of asbestos.

Caitlin Burton, is ADAO’s Registration Assistant. Caitlin is a program officer at the Institute of International Education, where she manages conservation & sustainability research and microinsurance development programs. She has worked and studied on five continents, focusing primarily on US foreign policy; transnational and post-communist political currents in Central and Eastern Europe; and public health, poverty migration, and rural livelihood/sustainable development in South Asia and Southern Africa. Caitlin received a master’s in public policy from Cornell University and a bachelor’s in international affairs from the George Washington University.

Sharry Erzinger, Dr. P.H., ADAO Colorado Representative. She is ADAO Speaker Liaison and Unity & Hope Brunch Chair. Sharry has extensive experience in promoting public and community health. Using her medical background as physicians’ assistant and research training in public health, she brings technical research into practical programming and advocacy for broad audiences. She currently directs the Community Health Sciences program at University of Colorado at Denver where she continues to teach and provide consultation in evaluation of health programs. She has lived and worked in a variety of Latin American countries and has ongoing community health projects in Peru and Ecuador. She is committed to publicizing the toll of asbestos and preventing asbestos disease in low and middle-income countries.

Debbie Granow, ADAO Volunteer Coordinator and a longtime friend of the Reinstein family and founding ADAO supporter. As an experienced volunteer, Debbie brings her organizational talents and vibrancy to the ADAO conference. In memory of Alan, Debbie coordinates critical onsite volunteer efforts and details to ensure the conference's success.

Joshua M. Zygielbaum, ADAO Medical Outreach, is a former Sergeant in the United States Marine Corps who became involved with Asbestos Disease Awareness Organization in 2009 after watching his fathers’ successful battle with Peritoneal Mesothelioma. Joshua holds a BA in History from the University of California Santa Barbara and is currently working towards a Masters in Public Administration with a focus on Non-Profit Organization and Management at the University of Colorado Denver. Since serving in the military, Josh has been involved with corporate business development and finance. He is currently in banking with Wells Fargo Bank, NA. He resides near Denver, Co with his wife, Tammie, and daughter, Ava.

The Asbestos Disease Awareness Organization 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.437.3886 “United for Asbestos Disease Awareness, Education, Advocacy, Prevention, Support and a Cure.” www.AsbestosDiseaseAwareness.org


House Resolution 1138 IN THE HOUSE OF THE UNITED STATES 111th CONGRESS 2nd Session

Expressing support for the designation of the first week of April 2010 as ‘National Asbestos Awareness Week’ Whereas dangerous asbestos fibers are invisible and cannot be smelled or tasted; Whereas the inhalation of airborne asbestos fibers can cause significant damage, including mesothelioma, asbestosis, and other health problems; Whereas asbestos-related diseases can take 10 to 50 years to appear; Whereas the expected survival time for people diagnosed with mesothelioma is between 6 and 24 months; Whereas generally little is known about late stage treatment of asbestos-related diseases and there is no cure for such diseases; Whereas early detection of asbestos-related diseases may give some patients increased treatment options and might improve their prognoses; Whereas the World Health Organization, the Environmental Protection Agency, and the Surgeon General currently state that there is no safe level of exposure to asbestos; Whereas, although the United States has reduced its use of asbestos substantially, the United States continues to use almost 2,000 metric tons of the fibrous mineral in certain products; Whereas exposure to asbestos continues, but safety and prevention of asbestos exposure already has significantly reduced the incidence of asbestos-related diseases and can further reduce the incidence of such diseases; Whereas asbestos has been a cause of occupational cancer; Whereas thousands of workers in the United States face significant asbestos exposure; Whereas thousands of people in the United States die from asbestos-related diseases every year; Whereas a significant percentage of all asbestos-related disease victims were exposed to asbestos on naval ships and in shipyards; Whereas asbestos was used in the construction of a significant number of office buildings and public facilities built before 1975; Whereas people in the small community of Libby, Montana have asbestos-related diseases at a significantly higher rate than the national average and suffer from mesothelioma at a significantly higher rate than the national average; and Whereas the establishment of a `National Asbestos Awareness Week' will would raise public awareness about the prevalence of asbestos-related diseases and the dangers of asbestos exposure: Now, therefore, be it Resolved, That the House of Representatives urges the Surgeon General-(1) to warn and educate people about the public health dangers of asbestos exposure, which may be hazardous to their health; and (2) as part of such educational efforts, to designate a `National Asbestos Awareness Week'. The Asbestos Disease Awareness Organization 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · www.adao.us


Senate Resolution 427 IN THE SENATE OF THE UNITED STATES 111th CONGRESS 2nd Session

Designating the first week of April 2010 as ‘National Asbestos Awareness Week’ Whereas dangerous asbestos fibers are invisible and cannot be smelled or tasted; Whereas the inhalation of airborne asbestos fibers can cause significant damage; Whereas asbestos fibers can cause mesothelioma, asbestosis, and other health problems; Whereas asbestos-related diseases can take 10 to 50 years to present themselves; Whereas the expected survival time for those diagnosed with mesothelioma is between 6 and 24 months; Whereas generally little is known about late stage treatment of asbestos-related diseases and there is no cure for such diseases; Whereas early detection of asbestos-related diseases may give some patients increased treatment options and might improve their prognoses; Whereas the United States has reduced its consumption of asbestos substantially yet continues to consume almost 2,000 metric tons of the fibrous mineral for use in certain products throughout the Nation; Whereas asbestos-related diseases have killed thousands of people in the United States; Whereas exposure to asbestos continues, but safety and prevention of asbestos exposure already has significantly reduced the incidence of asbestos-related diseases and can further reduce the incidence of such diseases; Whereas asbestos has been a cause of occupational cancer; Whereas thousands of workers in the United States face significant asbestos exposure; Whereas thousands of people in the United States die from asbestos-related diseases every year; Whereas a significant percentage of all asbestos-related disease victims were exposed to asbestos on naval ships and in shipyards; Whereas asbestos was used in the construction of a significant number of office buildings and public facilities built before 1975; Whereas people in the small community of Libby, Montana have asbestos-related diseases at a significantly higher rate than the national average and suffer from mesothelioma at a significantly higher rate than the national average; Whereas the establishment of a `National Asbestos Awareness Week' would raise public awareness about the prevalence of asbestos-related diseases and the dangers of asbestos exposure: Now, therefore, be it Resolved, That the Senate -1) designates the first week of April 2010 as “National Asbestos Awareness Week”; 2) urges the Surgeon General to warn and educate people about the public health issue of asbestos exposure, which may be hazardous to their health; and 3) respectfully requests the Secretary of the Senate to transmit a copy of this resolution to the Surgeon General. The Asbestos Disease Awareness Organization 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · www.adao.us


April 1, 2009

Statement from Acting Surgeon General Steven K. Galson about National Asbestos Week In recognition of ‘National Asbestos Awareness Week,’ I urge every American to become aware of the public health issues of asbestos exposure and the steps they can take to protect their health. In recent decades, because of concern about asbestos’ health effects, production and use has declined substantially. Most individuals exposed to asbestos, whether in a home, in the workplace, or out-ofdoors will not develop disease- but there is no level of asbestos exposure that is known to be safe and minimizing your exposure will minimize your risk of developing asbestos-related disease. Asbestos is the name given to a group of fibrous minerals that occur naturally in the environment. Low levels of asbestos are commonly in the air as fibers enter the environment from natural rock outcroppings, products that contain asbestos, former asbestos mining and milling operations, and from disturbance of asbestos-containing material. It is when we are exposed to much more concentrated levels of asbestos that we should be concerned. Therefore, it is important for all Americans to be aware of asbestos levels in their environment. Asbestos can be dangerous if it is inhaled. Activity that disturbs asbestos causing these small fibers to float in air increases the chances of inhalation and the contraction of asbestos-related diseases. Disturbance is what leads to exposure. Do not attempt to touch or remove asbestos by yourself. Only people professionally trained and certified to safely handle asbestos should remove it. Once breathed in, asbestos fibers can remain in the lungs for years and even decades. Inhalation of asbestos fibers can cause inflammation and scarring of the lungs, changes in the lining of the chest cavity around the lung, and certain cancers. Remember that tobacco smoke greatly increases your risk of lung cancer if you have also been exposed to asbestos. If you think you have been exposed to asbestos, I encourage you to speak to your health care provider. Your provider can tell you if any of your health problems might be caused by asbestos exposure. To learn more about asbestos and asbestos related diseases, please visit: http://www.atsdr.cdc.gov/asbestos/ http://www.cdc.gov/niosh/topics/asbestos/ http://www.epa.gov/asbestos/http://www.surgeongeneral.gov/news/pressreleases/pr20090401.html

ADAO salutes the United States Senate for “urging the Surgeon General to warn and educate people about the public health issue of asbestos exposure.”


IBAS Activities 2009 by Laurie Kazan-Allen, IBAS Coordinator Throughout 2009, IBAS continued to work with its global partners to highlight the damage done by asbestos. In consultation with the virtual ban asbestos network and in recognition of the fact that 55% of global asbestos consumption takes place in Asia, it was decided to hold a series of events in China. The Asian Asbestos Conference 2009 (AAC 2009) was a landmark accomplishment as it was the first ever independent asbestos conference to be held in China, the world’s largest user of asbestos. At plenary, workshop and roundtable sessions on April 26 & 27, experts from four continents engaged with representatives and delegates from many Asian countries in order to discuss strategies for facilitating a regional ban and supporting individuals and communities damaged by asbestos. As a result of the AAC 2009, the Asian Ban Asbestos Network was launched.

To disseminate the valuable information presented in Hong Kong at the AAC 2009, a comprehensive report was published by IBAS in November 2009; the report was also uploaded to the IBAS website where it can be accessed free of charge as can other IBAS publications. Throughout 2009, ban asbestos mobilization escalated around the world. New asbestos research projects were begun in India and Indonesia as a result of funding by IBAS and its partner organizations. In Brazil, Japan, Korea, Italy, Australia, the UK and the United States asbestos victim support groups and trade unions consolidated progress while initial discussions on national asbestos legacies began in earnest in China, Kazakhstan and Iran. The achievements which have been made and the ones yet to come are a result of the coordinated effort of the global ban asbestos movement; IBAS is proud to be part of this dedicated network. An asbestos-free future is possible! http://www.ibasecretariat.org/


PRESIDENTIAL VOLUNTEER SERVICE AWARDS   ADAO is forever grateful to the following volunteers for their loyalty and dedicated  collaboration on behalf of asbestos victims everywhere. Based on their hours of service and in  appreciation and recognition for their diligent hard work, ADAO is awarding each of them the  Presidential Volunteer Service Award. The awards will be presented at the 6th Annual  Asbestos Awareness Day Conference, Chicago, Illinois, April 9‐11, 2010.   

 

 

Bronze 

Silver 

 

Gold 

 

YOUNG ADULT AWARDS  Silver  Silver  Gold 

Caitlin Burton  Kate Diana  Emily Reinstein 

Washington, DC  New Jersey   California  

 

ADULT AWARDS  Bronze  Bronze  Bronze  Bronze  Silver  Silver  Silver  Silver  Silver  Silver  Gold  Gold  Gold  Gold  Gold  Gold  Gold  Lifetime 

Holly Cornwell  Freddi Segal‐Gidan  Debbie Granow  Jill Vaughn  Marilyn Amento  Sharry Erzinger  Kim Larkin  Jordan Zevon  Michelle Zygielbaum  Paul Zygielbaum  Bonnie Diana  Arthur Frank  Herman Hamilton  Doug Larkin  Richard Lemen  Ellen Tunkelrott  Margy Urnberg  Linda Reinstein 

Virginia  California  California  Texas  Pennsylvania  Colorado  Virginia  California  California  California  New York  Pennsylvania  Maryland  Washington, DC  Georgia  California   Nevada  California  

 

Congratulations!

Lifetime 

 


Light a candle in Unity, Hope & Remembrance

April 11, 2010 at 10:30 a.m. Central Standard Time

Please join ADAO for our annual worldwide candlelight vigil in honor and celebration of those who have died from asbestos exposure, to support the families and friends who are grieving, and to find strength from those whose mission is to have a world free of asbestos.

During the ADAO Remembrance Brunch, we will light five candles to

Remind us of love Heal our grief Give us courage Honor our memories Strengthen our pledge to continue


ADAO Partners


2010 ADAO Sponsors Platinum Sponsors

Gold Sponsors Baron and Budd, PC Brayton & Purcell, LLP Shein Law Center, LTD Silver Sponsors Belluck & Fox, LLP International Association of Heat and Frost Insulators and Allied Workers

Bronze Sponsors DeLuca & Nemeroff, LLP Early, Ludwick, Sweeney & Strauss, LLC Wylder Corwin Kelly, LLP

Friends of ADAO Canadian Autoworkers Barbara Ann Karmanos Cancer Center ADAO does not make legal or medical referrals, nor do we endorse its corporate sponsors, their policies, products or services.


Event Hosts Meet and Greet Host

Simmons Law Firm Continental Breakfast Host

Kazan, McClain, Lyons, Greenwood & Harley, PLC Conference Lunch Hosts

Kazan, McClain, Lyons, Greenwood & Harley, PLC Simmons Law Firm Speakers, Honorees and Sponsors Dinner Host

Barbara Ann Karmanos Cancer Institute Unity and Remembrance Brunch Host

The John McNamara Foundation


Asbestos Disease Awareness Organization (ADAO) was founded by asbestos victims and their families in 2004. ADAO seeks to give asbestos victims and concerned citizens a united voice to raise public awareness about the dangers of asbestos exposure. ADAO is the largest independent organization dedicated to preventing asbestosrelated diseases through education and legislation. ADAO’s mission includes supporting global advocacy and advancing asbestos awareness, prevention, early detection, treatment, and resources for asbestos-related disease. ADAO Accomplishments include: • • •

ADAO Annual International Asbestos Awareness Conferences: o DC, NY, PA, MI, CA and IL ADAO Product Testing (Phase I) o Test revealed 4 consumer products and 1 toy were contaminated with asbestos, 2007 Presentations: o American Public Health Association (APHA), 2009 o Keynote, Environment Information Association (CEIA), 2009 o Asian Asbestos Conference, Hong Kong, China, 2009 o Keynote, National Asbestos Conference, South Africa, 2008 o American Public Health Association (APHA) on ban asbestos bills, 2008 and 2009 o Patient Career Day, Leeds, England, 2008 o International Mesothelioma Interest Group (IMIG), Amsterdam, 2008 o House of Representative Sub-Committee Staff Briefing, 2008 o Keynote, Environment Information Association (EIA), NM and NA, 2007 and 2008 o House of Commons Occupational Safety And Health, London, England, 2007 o Asian Asbestos Conference, Bangkok, Thailand, 2006 o Global Asbestos Congress, Tokyo, Japan, 2004 Resources: o Science Advisory Board consisting of preeminent experts with more than 250 years of combined experience o Online Asbestos Video Library featuring all conference presentations o Trilingual materials for early detection, prevention, and high risk occupations o Educational commercials o Online Memorial Tribute Photo Page Public Policy: o Testified before the EPW full Senate Committee, 2007 o Testified before the EHM House Subcommittee, 2008 o 3rd White House Meeting with Domestic Policy Counsel to President George H. W. Bush o 5th Annual Asbestos Awareness Resolutions declaring the first National Asbestos Week Publishing/Productions: o Develop and manage Ban Asbestos Site, 2008 o American Journal of Industrial Medicine, 2006 o ADAO “Survivor” Video featuring Paul Zygielbaum, mesothelioma patient o “Reflections,” an online global education and research publication o “Asbestos Kills” slideshow featuring Warren Zevon’s Grammy winning song Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, Prevention, Support and a Cure" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.437.3886 www.AsbestosDiseaseAwareness.org


KEYNOTE SPEAKER Jordan Barab

Deputy Assistant Secretary, Occupational Safety and Health Administration Health Administration Written by Dr. Richard A. Lemen, Ph.D., Assistant Surgeon General, United States Public Health Service (Ret.) and ADAO Science Advisory Co-Chairman

In 2009, professionals across the United States lauded news that Jordan Barab would serve as the acting head of the Occupational Safety and Health Administration. For decades, Jordan Barab has been dedicated to giving American workers a healthier and safer work environment. His commitment and experience in public health and safety in the labor movement, at OSHA, and in the House of Representatives will give OSHA the leadership it has been lacking over the last decade. My association with Jordan started many years ago, and I could not be more pleased with his leadership position at OSHA. As Deputy Assistant Secretary he truly gives a much needed voice to the American worker. His leadership and candid talk concerning the need for health and safety reform with reasonable compliance will improve America’s workplace making it not only more productive but a model for health and safety around the world. He is an advocate not only for the worker, but for the entire worker’s family. Before coming to OSHA, one of the most striking aspects defining Jordan Barab’s character was his farsighted and candid appraisals of workplace injury and illness as he voices them loud and clear through his award-winning weblog, “Confined Space.” Though his duties at OSHA no longer allow him to continue his writing for the blog, his messages of needed health and safety reform with responsible compliance still resonates with audiences and echo’s through Congress today. As global demand for an asbestos ban mounts, we benefit from Jordan Barab’s smart, strong, and steady leadership at OSHA and for his commitment to the American worker. Congratulations Jordan, and may you continue shedding light on the issues that so many would prefer to leave in the dark or ignore their importance.


In 2003 ­2004 my life took an unforeseen turn that changed everything…  By Jordan Zevon, ADAO Spokesperson  My  mother  and  father,  both  without  prior  health  issues, in their mid 50’s succumb to cancer. My mother  from breast cancer and my father from this rare cancer  that  neither  of  us  had  ever  heard  of  called  “mesothelioma”.    I  sat  next  to  him  in  bed  as  we  examined his life with a fine toothcomb, but we could  never  come  up  with  an  explanation  of  his  origin  of  exposure  to  asbestos.  After  he  died  I  was  resigned  to  never  have  the  answers,  to  forget  about  this  mysterious illness thinking it was one in a million, that  asbestos  was  long  a  thing  of  the  past  and  nothing  I’d  have to worry about.  Then  my  life  changed  again  when  Linda  Reinstein  called  me  and  asked  if  I  would  be  interested  in  becoming  the  National  Spokesperson  for  the  Asbestos  Disease  Awareness  Organization  she  had  created  along  with  Doug  Larkin.    I  was  blown  away  and  honored.  I  met  with  Linda,  her  amazing  family,  daughter  Emily  and  husband  Alan.  My  wife,  Jodie   and  I  fell  in  love  with  them  right  away.  I  had  no  idea  at  the  time  of  what  was  to  become  such  an  important part of my life.   Over the years I would learn that asbestos exposure can take as many as 50 years before developing  into  serious  and  often  life  threatening  illnesses.  That  it  could  take  as  little  as  one  incredibly  tiny  speck  of  fiber  to  later  lead  to  such  destructive  diseases,  that  we  are  still  surrounded  by  asbestos  exposure risks, that a full asbestos ban bill has not yet been passed by our government.  If not for  my work with ADAO I’m quite sure that I would still be unaware of these facts. My heart sinks for  those  who  still  see  mesothelioma  as  nothing  much  more  than  as  many  have  remarked  to  me,  “something on that late night law firm commercial.”  On a personal level ADAO has given me the gift of friendship with the families, friends and patients  that have come together to share our journeys and offer comfort through understood heartbreak.  I’ve had the honor of meeting scientist and physicians from around the globe that have dedicated  their  vast  educations  and  invaluable  time  in  search  of  answers  taking  steps  towards  treatment.  ADAO has become an incredible addition to my life and I look forward to our annual convention as a  time to reflect and share with many that have become a part of my family.  In  the  entertainment  community,  The  Daily  Variety  is  our  Wall  Street  Journal.  It’s  the  pivotal  source  of  information  and  events  that  pertain  to  our  industry.  Army  Archerd  was  a  legendary  symbol  of  entertainment  journalism  and  the  gold  standard  for  classy  yet  unapologetically  honest  commentary. When I produced my first film, it was a mention in Army’s famous page 2 column and  it really made me feel like a true part of “show biz”.   With the presentation of this years inaugural, Warren Zevon “Keep Me in Your Heart” Memorial  Tribute to Army Archerd, it fills me with pride as a son, with respect as a dedicated reader, and in  both  cases  with  honor  as  the  spokesperson  for  ADAO.    Our  accomplishments  always  carry  the  remembrance of loss. Yet it is that very loss that fuels our drive and determination with our sights  set on hope for the future and our hearts always full.   


Emerging Leaders Looking Ahead Towards the Future  By Caitlin Burton   

When I first started volunteering with ADAO in 2006, it was out of grief and necessity. I wanted to stand by my friends who had lost a husband and father to mesothelioma. The conferences, in my mind, were largely ceremonial, a reason to meet, share, grieve, and dwell in ways that we simply couldn’t do the other 363 days of the year. Because the rest of the year we had to keep our chin up and pretend that life goes on. I think this perspective stemmed partly from our role as victims in this mess--the scientists, doctors, and lawyers probably experienced something entirely different--and partly from the fact that the ADAO really was a grieving enterprise in its early years. Today it is something entirely different. It’s a powerful voice that very important people take seriously. The biggest change for many of us this year is the full realization of the ADAO’s efficacy. This realization dawned on me one morning as I sat with Linda in a hotel room writing a letter to the World Health Organization urging it to declare an international asbestos awareness week. After listening to Linda’s debriefings on her conversations with a dozen members of Congress over the past several days, it seemed only natural that we would be directly addressing the premier international authority on public health. After a very brief David and Goliath moment where I wondered what in the world we were doing, I took a step back and realized how far this organization has come in the past year. The ADAO addressed the American Public Health Association, the Environmental Information Association, and the Asian Asbestos Conference; met with representatives from public agencies like congress and the Environmental Protection Agency; visibly increased its international presence; and signed on a member of the Occupational Health and Safety Administration as its 2010 ADAO Conference keynote speaker. This isn’t ceremonial; this is real. ADAO is growing into an incredibly strong organization and making headway toward our goal of an international asbestos ban. Instead of mourning for a couple days per year, we are active and impactful year round. I am still developing my role, but in the meantime I’m so proud to be a part of what I know is a vital, change-making movement.

Kate Diana   

 

        Caitlin Burton   

 

          Emily Reinstein 

 


Alan Reinstein ‐ 1939 – 2006  “Every Daughter Deserves a Dance with her Father”   Emily Reinstein    It’s hard to believe that 6 years ago, my mom and I flew to Washington D.C. out of anger and  hope for a change in our country.  We had no expectations and couldn’t even fathom walking down the  halls of the Senate.  But now, I constantly overhear my mom on the phone with representatives from  Senators and we have personally met with Senator Boxer.  Even more importantly, ADAO has embodied  the need for international change by connecting with representatives from countries such as England,  South Africa, India, and many others.  With the help of this international community, our common goal of prevention, education, and  advocacy are closer than ever.  The accomplishments of ADAO are an outstanding example of how  turning anger into action can be more beneficial than simply complaining.  All the volunteers involved  in ADAO have all gone through their own personal struggles which add personality to this organization  and fuel others to make a powerful change.  My personal story started at a very young age.  I was ten when my dad, Alan, was diagnosed  with Mesothelioma.  I had absolutely no idea what that word meant or even how to pronounce it.  After  coming home from summer camp, I was sat down at our kitchen table and told that Daddy had cancer,  but that he would be okay.  My parents did an incredible job of hiding the negative events going on in  our life and making my life go on with little change.  After a while and a few surgeries here and there,  my true life began to emerge.  My dad had one lung, and was hanging on with a thin string of hope,  which was my mom and me.  He passed away on May 22, 2006. It was the day of the season finale of our  favorite T.V. show, 24.  I was unable to finish that season with my father and realized that many other  unfinished things involving him would come in my future, such as my graduations and wedding.   Through this time in my life however, my family was able to make a change in our government  as well as in the lives of other families.  When my mom and I went to D.C. for the first time, we  wandered the halls with a picture of my dad and me dancing together at a Bat  Mitzvah, asking to meet with representatives.  Obviously, we didn’t quite  understand how things worked in the legislative process.  All we had going for  us was the picture and my mom’s quote, “Every daughter deserves to dance  with her father at her wedding.”  But now, ADAO is able to call a Senator,  schedule an appointment, and talk to respected  officials with ease.  ADAO has deservedly earned  the title of a highly valued nonprofit volunteer organization.  The change  that has been made internally is visible and tangible.  I am proud to say that  I am a part of this wonderful organization and hope that the children of  victims will carry on this legacy for years to come.  It is very true that the  youth is our future and we are well aware of this fact.  I, personally, have  never been pressured to do anything asbestos‐related; I always do it out of  my own will.  My wish is for no family or individual to go through what my  family and countless others have.    So from individuals fighting for the truth and change to a large  organization with respect in the legislative community, this international  family has and will continue to represent and aid those affected by asbestos.  Ignorance has never, and  will never be, bliss.    


For Immediate Release: Tuesday, April 10, 2007

ADAO Demands Justice for Congressional Tunnel Workers Washington, DC …April 10, 2007 --- The Asbestos Disease Awareness Organization (ADAO), an organization dedicated to serving as the voice of asbestos victims, today demanded justice for the Congressional tunnel workers affected by asbestos exposure. “It is amazing that any employer tries to get away with an asbestos cover up these days and still more amazing when the employer is Congress,” according to Linda Reinstein Executive Director and Co-founder of the Asbestos Disease Awareness Organization. “Nearly a decade ago, the Architect of the Capitol (AoC)’s own investigations documented deadly airborne asbestos in the utility tunnels housing the systems that keep Congress warm in winter and cool in summer. One year ago the power plant tunnel crew wrote to members of Congress pleading for help because nothing had been done to protect them in the intervening time. One year ago my husband died of mesothelioma, an unwitting victim of asbestos. The cycle of exposure and lies and inaction and death continues, unbroken.” Reinstein continued: “Congress must immediately appropriate funds to fix the tunnels and to compensate the tunnel workers for life-threatening injuries they incurred just because they showed up for work each day and did their jobs. Congress must compensate their families, who were almost certainly contaminated with fibers carried home on work clothes, and who are now condemned to live under the perpetual shadow of asbestos disease. For those of us who have lost loved ones, it's too late. It's not too late for Congress to do the right thing by its own employees, and to make sure this doesn't happen again.” According to Dr. Richard A. Lemen, former Assistant Surgeon General (ret) United States Public Health Service and CoScience Director of the Asbestos Disease Awareness Organization: “To observe a deplorable situation like this in the tunnels of our United States Capitol is shocking - 37 years after the deliberative bodies housed there passed landmark public health legislation aimed to protect America's workers and our environment. This tragedy was unfolding right underneath the location of those historic deliberations that resulted in the passage of the Occupational Safety and Health Act of 1970 and the creation of the Environmental Protection Agency.” “ADAO has been assured by the U.S. Senate that it is working to protect and uphold the rights of asbestos victims, making this egregious discovery all the more inexcusable,” according to Douglas Larkin, Communications Director and Co-founder of the Asbestos Disease Awareness Organization. “It is not only time for the truth to be told; it is time for justice to be enacted for these workers and their families.” Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit volunteer organization "United for Asbestos Disease Awareness, Education, Advocacy, Prevention, Support and a Cure" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.437.3886 www.AsbestosDiseaseAwareness.org


Past Honorees Tribute of Hope Award 2005 Gayla Benefield 2006 Senator Harry Reid 2007 Senator Patty Murray 2008 Dr. Aubrey Miller 2009 Senator Barbara Boxer Tribute of Unity Award 2005 Laurie Kazan-Allen, IBAS 2006 Jim Fite, White Lung 2007 Patrick Martin, Member of Canadian Parliament 2008 The Canadian Auto Workers 2009 Margaret Seminario, AFL/CIO

Tribute of Inspiration Award 2005 Jill Vaughn 2006 Chuck Strahl, Member of Canadian Parliament 2007 Paul and Michelle Zygielbaum 2008 John Thayer 2009 Raghunath Manwar & Pralhad Malvadkar Selikoff Lifetime Achievement Award 2006 Paul Brodeur 2006 Dr. Yasunosuke Suzuki 2007 Dr. Michael Harbut 2008 Dr. Barry Castleman 2009 Dr. Stephen Levin Alan Reinstein Memorial Tribute 2007 Les Skramstad 2008 John McNamara 2009 Dominick Marzicola


2010 ADAO Honorees United States Senator Richard Durbin Tribute of Hope Award Dr. Hedy Kindler Selikoff Lifetime Achievement Award Center for Asbestos Related Disease Tribute of Unity Award Fernanda Giannasi Tribute of Inspiration Award June Breit honored posthumously The Alan Reinstein Memorial Tribute Army Archerd honored posthumously Warren Zevon “Keep Me In Your Heart� Memorial Tribute * To be presented in Los Angeles at a later date.


2010 Asbestos Disease Awareness Organization Honoree

U.S. Senator Richard Durbin Tribute of Hope Presented by Paul and Michelle Zygielbaum

Like so many others, our lives were changed by a diagnosis of mesothelioma. Every expectation, every dream, every wish, every hope that we had for our future together vanished overnight, swallowed in a chaos of uncertainty, fear, and anger. Any victim of an asbestos-related disease must summon a special kind of courage to face that void, because without such courage in the face of that darkness, it is impossible to rebuild the hope that is the first thing necessary to keep going. All of us at this conference and involved in this struggle have a keen understanding of this challenge. Hope can be rebuilt, and it can abide. We stand here after some six years of grappling with mesothelioma. These have been mostly good years. Every day is a blessing. Every smile from a loved one is worth the fight. And we have hope of many more years to come. We are more fortunate than many, in this way, and so we must share the burden of helping others to rebuild and sustain their own hope. Such hope is not just about one’s personal survival, or sustaining one’s family. It must address the greater good, improving medical treatments, protecting the rights of victims and their families, and ultimately preventing asbestos poisoning through public awareness and banning asbestos from commerce. Success at the personal level and at the national and international levels depends on having friends in many places: Here at this conference, throughout ADAO and other advocacy organizations around the world, in the press, in government, even in industry. Recent years have seen the emergence of a strong international community of people affected by asbestos-related diseases, the introduction of improved medical diagnostics and treatments, victories in the preservation of individual rights against a relentless onslaught by industry, broader awareness of asbestos hazards, and solid progress toward banning asbestos-laden products. We have not achieved our goals, but clearly our goals are no longer just wishes, for they have taken on solid form. Hope is the seed from which plans and action grow, and our progress affirms that our hope has been well-justified. In the halls of government here and overseas, a few individuals stand out as leaders in this effort. In particular, United States Senator Richard Durbin has been steadfast in protecting the legal rights of American victims and their families, in supporting Asbestos Awareness Week Resolutions these past six years, in urging the Surgeon General to warn the American public of the hazards of asbestos, in supporting the development of legislation to ban the presence of asbestos in products in America, and in many other instances. Today, due in no small measure to the efforts of Senator Durbin, we have hope that our goals for awareness, treatment, and prevention can be met. So, it is with great appreciation that ADAO presents the Tribute of Hope Award to Senator Richard Durbin.

The Asbestos Disease Awareness Organization 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.437.3886 “United for Asbestos Disease Awareness, Education, Advocacy, Prevention, Support and a Cure.” www.AsbestosDiseaseAwareness.org


2010 Asbestos Disease Awareness Organization Honoree

Hedy Lee Kindler, M.D. Selikoff Lifetime Achievement Award By: Laurie Kazan-Allen Human nature being what it is, no one expects to receive a cancer diagnosis; these things always happen to other people. When people are diagnosed with a disease they have never heard of and can’t even pronounce and then are told the prognosis is grim, they find themselves propelled into another dimension. Rosemarie Vojakovic, a councilor with the Asbestos Diseases Society of Australia, describes the “state of shock and fear” a mesothelioma diagnosis brings as a nightmare scenario which is as frightening as it is disorientating: “People have a plan for their life and something’s interrupted the plan. They don’t quite know what to do about that because the plan needs to go on, because there’s a house to be paid for, there are children at school, there’s a car that’s on hire purchase. How are they going to fix all that?” In just a matter of minutes, the personal road map which guided people’s day to day life had been rendered useless and they find themselves cast adrift on a shrinking ice floe. The fact that Dr. Hedy Kindler is able to bring hope and encouragement to people who have been blindsided by this devastating disease is a reflection not only of her professionalism and skill as a physician but also of her humanity and empathy. Describing their treatment by Dr. Kindler, former patients and family members have commented:   • Insulator David R: “Dr Kindler treated me as a person, not a patient. I’m an insulator – that means I know too well the end result of mesothelioma – but Dr Kindler never stopped looking for a cure for me. And she never let me stop, either.” •

Pipe fitter Joe C: “Sometimes I‘ll be feeling sorry for myself, asking ‘why me?’ Dr. Kindler never lets me wallow in self-pity. Whether through a joke or a funny story she lightens me up, and then subtly reminds me that we’re working together to find a cure, and that feeling sorry for myself isn’t going to help. Sometimes I wonder how she can stay so encouraging after dealing with people like me all day long, but that’s her gift.”

Becky S., daughter of an electrician treated by Dr. Kindler: “My father was diagnosed with mesothelioma at only 54. When he went to Dr. Kindler he was fully prepared to turn down all treatment so that he could live whatever was left of his life like a normal person – not someone dying and in fear of what came next. Dr. Kindler never used the word ‘dying’ with my dad; she used the word ‘live’. Her determination and optimism carried him through the course of his treatment and he lived the normal life that he sought.”

We all expect our doctors to be expert at what they do. That Dr. Hedy Kindler is one of the world’s leading specialists on mesothelioma is well documented by the many letters after her name, the numerous papers she has published, the cancer organizations she has served on and the many initiatives she has taken part in to push forward progress on treating mesothelioma. That she has impacted so positively on people facing the worst life can throw at them is a measure of her ability to treat the whole person and not just the illness. That she does this with such skill, humor and grace makes her a caregiver of the highest order and someone who is well-deserving of the honor being bestowed upon her in Chicago this year by the Asbestos Diseases Awareness Organization. The Asbestos Disease Awareness Organization 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.437.3886 “United for Asbestos Disease Awareness, Education, Advocacy, Prevention, Support and a Cure.” www.AsbestosDiseaseAwareness.org


2010 Asbestos Disease Awareness Organization Honoree

Center for Asbestos Related Diseases Tribute of Unity By Margy (Johnson) Urnberg

The Center for Asbestos Related Disease (CARD) was established in 2000 to address the needs for lung abnormalities due to the widespread asbestos exposure to the citizens of Libby, Montana and the surrounding area. In 2003, CARD became a 501c(3) non-profit, community-based organization. It not only provides treatment for patients, but research, outreach and psychosocial services as well. The CARD currently has approximately 3,000 patients with 20-25 new patients per month. The clinic estimates that new patients will continue to register through 2030, as an estimated 80,000 people exposed to asbestos in Libby between 1920 and 1990 will develop asbestos-related disease. Brad Black, MD, Medical Director, Kimberly Rowse, RN, Clinical Coordinator and Tanis Hernandez, LCSW, Outreach Coordinator, have attended ADAO conferences since 2006 networking with other doctors, researchers and organizations to bring about awareness, treatment and a cure for all asbestos related illnesses. On June 17, 2009 EPA announced that a public health emergency exists in Libby due to the hundreds of asbestosrelated disease cases documented in the communities of Libby and Troy. As a result of this determination, a shortterm federal grant will fund research over the next five years headed by Dr. Stephen Levin, a nationally known expert in occupational medicine and asbestos diseases. Dr. Levin has worked closely with the CARD since 2001 in clinical and research initiatives. Also involved in the research are the University of Cincinnati who is focusing on young people who were under 18 at the time of initial screening, and the University of Montana who is studying lung scaring and approaches to prevention. Libby victims are also studied for relationships among auto-immune disorders and blood markers related to asbestos disease. I lived in Libby from 1959 until 1968. My father worked at the mine and during my Junior High School years I sat at the base of Zonolite Mountain across from the screening plant waiting for the school bus. The dust from the mining equipment covered our car daily. It has been nearly 50 years since that time and in July 2009 I experienced the CARD from a patient’s perspective. I, along with 90% of patients, have made a commitment to provide lung tissue specimen in my end of life planning as we believe research is the key for treatment and a cure. In spite of receiving a diagnosis of asbestosis, I found the staff to be positive and uplifting. They treat patients with respect, dignity and teach them how to live with an asbestos related disease. They answer questions and are always accessible either by phone or email. The Board, Medical and Support Staff of CARD are to be commended for their dedication to the victims who have been exposed to asbestos. It is my distinct pleasure to congratulate the CARD for this Tribute of Unity award as they are shining examples that a small group of dedicated people can make a world of difference. If you would like to learn more about The Center of Asbestos Related Disease, please visit their website at http://www.libbyasbestos.org photo courtesy of Andrew Schneider The Asbestos Disease Awareness Organization 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.437.3886 “United for Asbestos Disease Awareness, Education, Advocacy, Prevention, Support and a Cure.” www.AsbestosDiseaseAwareness.org


2010 Asbestos Disease Awareness Organization Honoree Fernanda Giannasi Tribute of Inspiration by Laurie Kazan-Allen During a public service career of more than 25 years, Brazilian Labor Inspector Fernanda Giannasi has been a committed civil servant, a community organizer, a published author, a founder member of ABREA (the Brazilian Association of the AsbestosExposed) and the “go to” person for ailing Brazilian workers and family members whose lives have been decimated by exposure to asbestos. As a teacher she has instructed thousands of Brazilians, including engineers, prosecutors, health and labor inspectors, doctors and lawyers, on the reality of her country’s asbestos scandal. Her innate compassion and sense of justice combined with her formidable training made her the perfect spokesperson for so many of her compatriots who had been poisoned by their exposure to asbestos, one of Brazil’s highly valued natural resources. Understanding that asbestos transcended national boundaries, Fernanda, working as always with like-minded colleagues, founded the Latin American Citizens’ Virtual Network Against Asbestos. For her unstinting efforts to give a voice to Brazil’s asbestos victims she became a target of intimidation, a recipient of criminal lawsuits and death threats. The Brazilian asbestos lobby monitors her every spoken word, every internet upload and every trip she takes. Asbestos bully boys have physically threatened her at home as well as abroad; I personally witnessed a frightening incident in Vienna, where Fernanda was accosted by a well-known asbestos thug who had been brought to Austria for an event organized by Russian asbestos industry stakeholders. Even as she was being targeted by her enemies, and they include some within government agencies, she has been much lauded by civil society at home and abroad. In Brazil, Fernanda was one of the successful nominees for Women of the Year 2001; the same year, she was named a “Remarkable Citizen” by the Association of Progressive Businesses. In 2002, she was honored by CIPA magazine as “Professional of the Year;” while two years later she won the title “Remarkable Labor Inspector.” The American Public Health Association, the International Ban Asbestos Network, the International Society for Environmental Epidemiology and the Tajiri Muneaki Memorial Fund have all singled Fernanda out for outstanding contribution to occupational and public health. Fernanda’s skills and talents are truly too many to catalogue so let me explain, through a typical Fernanda story, how this incredible woman works. In the course of an asbestos awareness week in Osasco, formerly the center of Brazil’s asbestos industry, ABREA was holding a public information session outside the town’s busiest shopping center. Information about asbestos and the number of local people who had died were erected on poster boards and leaflets on asbestos were distributed from a booth manned by ABREA supporters. Next to this booth, there was another venture selling some kind of herbalist treatment. To attract public attention, there was a lively and agile (did I say bare-chested?) man taking all sorts of physical stances and convoluted poses all the while lauding the amazing tonic which was available for just $9.99 (well the price is not right because in Brazil they spend reais and not dollars but you get the picture). Fernanda soon realized that ABREA could not compete with the dynamism of this demonstration. She waited. When he took a break, she engaged him in conversation. As he began his next demonstration, he paid tribute to the work of ABREA and urged people to learn more about the killer fiber, asbestos. Needless to say, the number of folks who came over to the ABREA stall increased. Fernanda, who might just about be 5 feet, is a colossus! She has done more than anyone to kick-start the asbestos debate not only in Osasco, but throughout Brazil and Latin America. She is that rare combination of a details and ideas person; an incredible politician and networker, she has friends from every strata of society all of whom adore her. She is a true phenomenon and a worthy recipient of the ADAO’s Tribute of Inspiration Award 2010.

Fernanda Giannasi with mesothelioma sufferer Dante Untura Filho, November 2009

The Asbestos Disease Awareness Organization 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.437.3886 “United for Asbestos Disease Awareness, Education, Advocacy, Prevention, Support and a Cure.” www.AsbestosDiseaseAwareness.org


2010 Asbestos Disease Awareness Organization Honoree

Army Archerd honored posthumously

Warren Zevon “Keep Me in Your Heart” Memorial Tribute Written by Tim Gray, Editor, Variety Magazine In showbiz circles, Army Archerd was as familiar as the Hollywood sign. For more than 50 years, he wrote his column for Daily Variety, beginning in 1953. And in the following decades, everybody wanted to be in his column, to be mentioned even briefly, because they knew it was a must-read. Army’s photo archives are like a history of show business. There are photos of him with everyone from Elizabeth Taylor & Richard Burton to Tom Cruise & Nicole Kidman. When a memorial service was held in January, the lineup of speakers included Steven Spielberg, Sidney Poitier, Sharon Stone, and Tom Sherak (president of the Academy of Motion Picture Arts & Sciences, who spoke of Army hosting the Oscar red carpet segments for 38 years). I was very honored and proud to join that roster of speakers. I had worked with Army at Variety since 1981. He was already a star reporter by then, and I’d grown up in L.A. watching him interview celebrities at Hollywood premieres. When I began at Variety, I had no newspaper experience, and had never even worked at my school paper. But Army treated me like an equal, because he knew we were both there for one reason: To put out a good newspaper. That was the only thing that mattered to him. Those of us who worked with him would marvel that, even after all those years, he never lost his enthusiasm for reporting, for getting the scoop, for offering stories and insights about the industry that nobody else had. Probably Army’s most famous column was his 1985 revelation that Rock Hudson was being treated for AIDS. The disease had been diagnosed only a few years before that, so many people had heard of AIDS, but it seemed strange, one of those diseases that "happen to other people." Army’s column drew furious denials from the actor’s publicists, who demanded a retraction, but Army didn’t back down, and Hudson’s representatives finally admitted that the story was correct. It helped put a face on a disease that was previously considered something remote and even shameful. More than 20 years later, Army died of asbestos disease. And even in the "enlightened" 21st century, this seems like something that "happens to other people" — as if it were a rare disease that affects only people who work on construction sites or in asbestos factories. But Army didn’t fit into any of those categories, and I hope that his death can help put a face on this disease, and can inspire more research and a cure. It was an honor to know Army and to work with him, and all of us at Variety are honored to be part of this evening.


2010 Asbestos Disease Awareness Organization Honoree

June Breit honored posthumously

The Alan Reinstein Memorial Tribute As a dedicated and compassionate registered nurse with more than 30 years of experience, June Breit brought a unique perspective to her efforts on behalf of patients and families impacted by asbestos. An inspiration to us all, June fought the battle against pleural mesothelioma since she was diagnosed in 2002 and underwent the invasive extrapleural pneumonectomy (EPP) surgery. And the war she waged against her disease went well beyond her own personal battleground. June became a political force to be reckoned within her home state of Pennsylvania and at the national level, while also providing tireless and loving guidance to other asbestos-disease patients. June had an enormous gusto for life. Prior to her surgery, she and her husband Howard were avid hikers and cyclists on the nearly endless trails surrounding their home on the outskirts of Philadelphia, a site selected specifically because of the natural beauty and recreation it provides. In addition, she enjoyed free-diving and snorkeling and loved to travel. June’s diagnosis came just as she was preparing for her wedding. The house already purchased and the nuptials planned, she and Howard were shocked to discover that what they initially thought was the flu turned out to be a life-changing illness that would impact many of their future plans but not the love they had for each other. Like many, June was left with a myriad of questions about how she developed this disease, particularly with no known occupational exposure, and how she was now going to live with it. As June explains, “That was the beginning of my advocacy because as a nurse and one who had specialized in community health – I saw this as a public health crisis. I was astonished and incensed.” June turned this anger into action. She was instrumental in advocacy efforts in Pennsylvania, which tragically holds the third highest rate of asbestos-related disease in the nation. What began as a quest to successfully convince the state’s consumer health site to include information on mesothelioma and asbestos related disease soon turned into a meeting with the Governor that led to the annual recognition of Mesothelioma Awareness Day in Pennsylvania. This had been coupled with her continuing political and educational efforts at the national level, fighting for a ban on asbestos and funding for increased treatment options. A devoted stepmother and grandmother of two, June served as a central force within her family, and it has grown well beyond her immediate one to include ADAO. As Alan Reinstein, for whom this award is named, knew well – June gave the greatest gift of all to so many who were left feeling abandoned and alone: Hope. She regularly zipped along on her Segway, spreading her energy and passion for life. “I know the sense of terror someone feels when they are diagnosed. I want them to know they’re not alone,” said June. “I will keep on fighting; I never give up.” The Asbestos Disease Awareness Organization 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.437.3886 “United for Asbestos Disease Awareness, Education, Advocacy, Prevention, Support and a Cure.” www.AsbestosDiseaseAwareness.org


June Breit 2010 Alan Reinstein Award Honoree June 2009, Washington, D.C.

June Breit (middle), with Bonnie Diana (left) and Linda Reinstein (right), after being presented with the 2010 Alan Reinstein Award in Washington, DC in June 2009, which she gratefully accepted as she entertained all with her spunky attitude along with her lovingly warm and contagious smile.


In Loving Memory of

Alan Reinstein 1939 – 2006 Unforgettable Husband and Father

Sweetly, we remember how you lived your life so deeply and without regrets. You loved us unconditionally. The broken shards of the past six years soften amongst 25 years of bliss and have become a cherished mosaic of memories. Our love for you is forever etched across our hearts, and we feel your love. Love, Linda and Emily


We miss our dearest friend,

Alan Reinstein We are so proud of

Linda

for carrying on the fight to make others aware of this horrible disease

Love, Lisa and Joel Cassel & Family


s a l u t e s f r i e n d

o u r

a n d

b e l o v e d

c o l l e a g u e

Army Acherd o n

r e c e i v i n g

the Warren Zevon “Keep me in Your Heart � Memorial Tribute and the ADAO for their continued e f f ort s i n r a i s i n g p u b l ic awa r e n e s s on the dangers of asbestos e xposure

IN MEMORIAM


Ronald H. Diana 1946 -2005 Son, Brother, Husband, Father, Friend


James Ernest “Doc” Robinson 1925-2005 WW II - Five bronze stars

Gone Fishin’ Wow, This is a fishing trip of a lifetime! What a reunion-why just today, I saw several buddies who’d gone before You wouldn’t believe how pretty this place is.. The streets-they’re paved in gold And my pole - it’s made of jewels! When I got here, Everyone welcomed me with their arms opened wide I pulled out my cap, so excited about… The Fishin’ Trip They said-“Oh No” “We have a cap for you” Funny thing-it looks a lot like a crown And it’s full of the most beautiful stones. (Seems he thought I put my best into everything I did) Better go now, got lots of catchin’ up to do-remember I love each and every one of you and will Miss you,

With all our love your loving family

So, Please, don’t be sad and start wishin’ Just think of me as….. Gone Fishin’

Written by a family friend


Joe Amento, Jr.  Environmental Asbestos Exposure 

1950‐2003  Ambler, PA 

Oh how our hearts ache to have you back home with us.  We miss you so much. You are in our hearts every single day.             Love,  Marilyn, Joey and Julie 


IN LOVING MEMORY

TODD HALL Lexington, KY January 12, 1967 – December 4, 2006

Victim of Mesothelioma Missing you so much. Love, Mom, Dad, Greg, Amy & Taylor  

             

Front: Yvonne (Mom), Todd holding Taylor (niece), Paul (Dad) Back: Amy (sister-in-law), Greg (brother)


Tribute to Bruce and Sue Arnold

Bruce and Sue Arnold are the proud parents of two sons and grandparents of three granddaughters. Bruce was diagnosed with pleural mesothelioma on August 12, 2008. In honor of his struggle and treatment we dedicate this tribute to him and to all those families who have been affected by asbestos-related diseases. The Arnold Family


Bud Cole

Myra Cole

Sept 15, 1923 –Apr 14, 2001 Apr 5, 1926 –Oct 11, 2007 Libby, Montana

My dad was a rough, tough mountain man who loved life, horses, fishing, hunting, and his garden. He ran a logging crew in the mountains he dearly loved. He had the most wonderful sense of humor, especially with his grandchildren. He was awarded the Purple Heart while serving in Italy during WWII. One of the men in his company was wounded as they lay in a ditch, and my father put this soldier over his shoulder and carried him to safety. Mom worked in the Seattle shipyards and at Fairchild Air Force Base during WWII. Dad provided the first horseshoe service in Libby and was a member of the Sheriff’s Posse. He and my mother loved to fish together and dad was famous for his smoked fish. Mom loved to cook, make jam from local berries, and can vegetables from dad’s garden. Dad was always generous to others with the bounty. When I was a toddler, my mom would carry me in the saddle with her as we rode horses to the high lakes in the Cabinet Mountains. Mom was very active at the St. John’s Lutheran church, a member of the American Legion Auxiliary, volunteered at the Libby Care Center, St. John’s Lutheran Hospital and the Libby Heritage Museum. Asbestosis took both of my parents. It robbed my dad of his inner strength during his long struggles against this terrible disease to the point that he prayed to be released from the shell of a man he had become. My memories of him will always be of the strong resolute man he was. I love and miss you mom and dad.

Lynda Hanley-Cole

Cliff & Thelma Moss

Dale – Katherine – Mel Bowker Former residents of Libby, Montana

In loving memory of our parents and brother Kenny and Karen Moss


IN HONOR OF ROB CAGLE “Mrs. Cagle, your husband has Mesothelioma.” My first thought was …. “Meso whoee whattee #*%@& ?” I had never even heard that word before. Since that day in October of 2005 our lives have not been the same. My name is Jill Cagle and my husband Robbie Cagle is a peritoneal mesothelioma victim. I say “victim” as this disease as we all know is 100% preventable. “How unfair!”, I thought, “especially after I read all of the expectancy ratios.” I am so thankful to God that we found Dr. Taub and Dr. Chabot. Rob has survived 2 surgeries, 2 years of chemo, a relapse in October ’09, more chemo, and a 3rd surgery. The last surgery was done to fix a hernia that was a result of a previous surgery. Dr. Chabot came out and said, “Jill, the tumor is ribboned through Rob’s intestines and, soft,” as they suspected, “But, it looks DEAD”. Now I don’t know about you, but a dead tumor sounds good to us. “I cannot be sure at this time what this will do for Rob’s life expectancy but we’ll take it.” Rob was exposed to asbestos earlier in life. Through this fight Rob remains strong and courageous and a great advocate to those who are newly diagnosed or who just need to talk. Being associated with ADAO and MARF has been a wonderful and educational experience and a great way to connect with others. Rob is a pull-no-punches man with a huge heart and a great capacity to love and to cheer anyone on. Rob and I have 3 beautiful daughters, a new son-in-law and an extremely loving family, friends and Church family without which we could never have survived this ordeal. Rob truly believes helping others has been key in his fight. Rob’s philosophy since the beginning of this, as is that of most of our doctors, is “Half of Cancer is

Between Your Ears. Fight every second that you can. DON’T EVER GIVE UP and always believe in yourself.” “Faith is believing in the impossible.”


No words on paper could ever describe my hero, a man of great  gentleness and passion. His loss is overwhelming and like far too  many others, it was unnecessary and avoidable. We had an  adventure all too short which left my family behind, but his legacy  was to unite the Mesothelioma groups and to Ban Asbestos.  It is with  great pride and honor we continue to do so, and with each tragedy  we remember our goal to fight to educate and end this useless  nightmare, and to create a world where no one has to suffer like our  families have.    The John McNamara Foundation is proud to work with ADAO and  applauds its tireless efforts to make this world a better place. One life  is too many.    Make memories that take your breath away.      TC McNamara 


In Loving Memory

 

of

Paul J. Sykes


JEFFREY FARNSWORTH 1946 -2003 IN LOVING MEMORY TO OUR ANGEL WE LOVE AND MISS YOU DEARLY

WITH ALL OUR LOVE, YOUR GIRLS


Ray Hoover June 21, 1956 – October 17, 2009

A Lifetime Away The leaves have fallen from the trees And summer days are gone. Lingering twilight in the chilling breeze And the end of the robin's song. All of my life I searched for you Not knowing it until that day When you appeared out of the blue After almost a lifetime away. Somehow we knew that time would fly And yet we embraced our love. We had time to laugh and sometimes cry And we thanked our Father above.

 

We now had hope for each new day And each other to comfort at night. You always had something tender to say And made everything seem all right.

                         

When sickness came and would not leave With courage I watched you fight. We prayed each day and tried to believe That somehow it would be all right. But time was slipping away... Faster each day, it seemed. With dignity and grace you continued to pray And at night, of Heaven, we dreamed. Heaven is where you are, its true, Above the storm clouds and rain, Where the sky is so eternally blue And there is no more sickness or pain.

 

 

Time is passing still faster each day And at night I miss holding your hand, But I remember you taught me to pray And to believe in the Promised Land. The trees will be dressed in leaves so new And summer days will re-appear. Twilight will become the eternal blue And the robin will sing so clear. It is a great comfort to know that you Are not really so far away,

   

Raymond F. Hoover diagnosed March 12, 2008 with malignant pleural mesothelioma due to asbestos exposure.


TRIBUTE TO EDMOND GRANT

For thirty years we were two halves of one person until exposure to asbestos dust developed into Mesothelioma and robbed you of your life, decades before your time. Ten years later, I am still half a person without you. Those who distribute and profit from asbestos in any form are no different than common drug dealers. The only difference is that you can recover from a drug addiction but asbestos exposure is far less forgiving…it’s deadly. We must ban asbestos and find a treatment and cure for future victims, in the names of those less fortunate who have gone innocently before them. Tim Devlin, Canada

  HOPE    Itʹs magic and itʹs free,   Itʹs not in a prescription. Itʹs not in an IV.  It punctuates our laughter, It sparkles in our tears,  It simmers under sorrows, And dissipates our fears.   Do you know what Hope is? Itʹs reaching past today,  Itʹs dreaming of tomorrow, Itʹs trying a new way,  Itʹs pushing past impossible, Itʹs pounding on the door,  Itʹs questioning the answers, Itʹs always seeking more,  Itʹs rumors of a breakthrough, Itʹs whispers of a cure,  A rollercoaster ride of remedies, unsure.  Do you know what Hope is?   Itʹs candy for the soul,  Itʹs perfume for the spirit.  To share it, makes you whole.  ~ Author Unknown ~


In memory of my best friend, my husband, Hermann Klingemann

It’s been five years, almost to the day, That the Lord took a member of our family away. I can still see his grin; I still remember his smile, His absence is something we can never reconcile. He said for us not to grieve; not even one hour, But the sorrow in our hearts diminishes that power. He now resides in heaven with our dearest dad, Reminiscing and joking about the good times we had. Our memories remain constant with each setting sun, Until one day we’ll join him when our time is done. His love for us was genuine and was never unrequited, We anxiously anticipate that one day we’ll be reunited.

In loving memory Albert Black  Mt. Holly, NJ  1926 ‐ 2003

who died on March 5, 2008 of mesothelioma caused by asbestos exposure 1939-2008 Love, Irene

In loving memory of our wonderful friend Alan Reinstein

Asbestos took this loyal  unsuspecting veteran. Asbestos  can never take his memory. Sadly  missed by his loving family and  friends.    Raye Black 

Love, Carole Schlocker & Ellis Levin


Tribute for Jill Vaughan,  From your ACOR Family  JillyPoo, your inspiration gives us strength and hope and your humor is the best medicine ever. Cheers to you!  Love, Linda     Jill Vaughn means the world to me and my family. My dad (in South Africa) was diagnosed with  mesothelioma having worked on the Railways all his life and insulated boilers with asbestos in his younger  years. He was diagnosed in January 2000 and sadly we buried him in December the same year. Jill was  supportive, encouraging, and gave wise counsel for the other changes in my life at the time. Jill is the most  incredible survivor and an inspiration to all who come into contact with her. She has taught me to take  responsibility for my own health and she and her husband Bud have become firm friends. Brent Stephens    Jill, Know you are loved and thought of and also remember all the people you have given hope to. I know that  God is with you and will carry you when you canʹt walk.  Love, Sue B    Smile ‐ God loves you! I ask the Lord to bless you, as I pray for you today; to guide you and protect you, as  you go along your way. Godʹs love is always with you, Godʹs promises are true. And when you give God all  your cares, you know God will see you through! Kim & Ray Hoover    Jill, I donʹt post often but I read the digest every night. My thoughts and prayers are with you!  Barbara Cutts    Dear Jill, You are one tough fierce warrior and have won so many battles....One more just for you now. You are  a fountain of knowledge and support for so many others...Now is our time for support for you. Our thoughts  and prayers and support are with you now as you have been for so many already.  Thank you, Love, HUGS!!!!!   Irene, widow of Hermann     Dear Jill, I’m thinking of you and wishing you a speedy recovery!  Carmen Landreth and family     My dear Jill, ʺEveryone has his burden.  What counts is how you carry it.ʺ ‐ Merle Miller  You carry it beautifully.  Thanks for blessing me with your friendship.  Phyllis Doss       The speech the stuffed horse makes to the Velveteen Rabbit in Margery Williamsʹ 1922 classic applies to you.   The horse says that when somebody REALLY loves you, then you become real:    ʺIt takes a long time.  Thatʹs why it doesnʹt happen often to people who break easily or have sharp edges or  have to be carefully kept.  Generally, by the time you are real, most of your hair has been loved off, and your  eyes drop out and you get loose in the joints and very shabby, but these things donʹt matter at all because once  you are real, you canʹt be ugly except to people who donʹt understand.ʺ    You, Jill, are REALLY loved by so many people on the ListServ that you couldnʹt be more real or more  beautiful!  Love you, Bec Gilbert    Jill, writing a tribute to an amazing woman should have come easily, it doesnʹt how do you say thank you for  being the wind breath my wings, for making breathing a little easier for me and accepting me, for me. I am  inspired by your every breath and thank God daily for having you there for me, when my candle was almost  out youʹve always held out a match, your my hero! When I grow up I want to be just like you! Love ya  Jillypooh! TC 


Held in Our Thoughts, Taken to Our Dreams, Kept in Our Hearts

W

arren Zevon died of mesothelioma on Sept. 7, 2003. The news made headlines all over the world. His distinctive body of work, the grace with which he handled his diagnosis and his determination to die as he had lived – making amazing music -– combined to add a special heartbreak to the news. Mr. Zevon’s fellow professionals were especially aware of his worth: A stunning array of popular music royalty perform on his final album, “The Wind,” which Mr. Zevon began after being told he had only months to live. And top artists from Jackson Browne to Bob Dylan had already sung or played on his recordings over the years. “The Wind” was honored with two Grammy Awards, and Mr. Zevon and his song, “Keep Me In Your Heart,” formed the centerpiece of a Grammy ceremony tribute to industry members who had passed away. Thought, passion, humor, and precision characterized Mr. Zevon’s lyrics. Those qualities drew many writers who eagerly collaborated with him on songs –- Pulitzer Prize-winning poet Paul Muldoon, Carl Hiaasen, Mitch Albom –- as well as those who simply counted him as a friend, such as Dave Barry and Jonathan Kellerman. Surely, no other “heavy metal folk singer,” as he called himself, had so many books dedicated to him. Then again, there was and will be no other heavy metal folk singer –- no other Warren Zevon. On Nov. 6, a few months after his death, the official Warren Zevon Bulletin Board (WZBB found at www.warrenzevon.com) made its debut, and his most dedicated fans –- or “customers,” as Mr. Zevon preferred –- gathered there online. Like Mr. Zevon, the WZBB is unique. It is a true community, perhaps because its members came together in grief. When we first joined to celebrate Mr. Zevon’s life, we also began to learn about mesothelioma, and about ADAO.

It seems incomprehensible that such a brilliant artist could be taken from us by a disease that is so easily preventable –- and that asbestos is still not banned. The simple fact that none of us will ever again eagerly await a CD filled with brand-new Warren Zevon compositions, or arrive at a concert venue absurdly early in hope of speaking to the man himself, because of a deadly material that is still not banned is mind-boggling -- and infuriating. Warren Zevon is irreplaceable, but with ADAO’s help, tragic deaths like his can be stopped. The members of the WZBB wholeheartedly support ADAO and the work it is doing to help mesothelioma victims and to prevent, detect and treat asbestos-related disease. We’re proud that Jordan Zevon, Warren’s son, is ADAO’s national spokesperson.

www.asbestosdiseaseawareness.org


Congratulations to the Asbestos Disease Awareness Organization on presenting its Sixth Annual Asbestos Awareness Day Conference And our congratulations and thanks To this year’s Honorees, for your efforts on behalf of all those suffering with or touched by asbestosrelated disease To Linda Reinstein, for your courage, tireless effort and willingness to do whatever’s necessary to reach our goals To Emily for being your mother’s intrepid sidekick To every volunteer and supporter of ADAO We look forward to the day that asbestos is banned everywhere, that knowledge of the hazards of asbestos is ubiquitous, that the rights of victims and their families are fully protected, and that medical treatments enable every patient to live a long, fulfilling life. Paul & Michelle Zygielbaum


Kazan McClain Lyons Greenwood & Harley A Professional Law Corporation

salutes Asbestos Disease Awareness Organization and

Congratulates the 2010 Honorees Senator Richard Durbin Tribute of Hope

Dr. Hedy Kindler Selikoff Lifetime Achievement Award

Center for Asbestos Related Disease Tribute of Unity Award

Fernanda Giannasi

Tribute of Inspiration Award

June Breit

Honored posthumously

The Alan Reinstein Memorial Tribute

Army Archerd Honored posthumously

Warren Zevon “Keep Me in Your Heart� Memorial Tribute Steven Kazan David McClain Philip Harley (1947-2009)

Dianna Lyons Jim Oberman

Of Counsel: Denise Abrams

Gordon Greenwood Frank Fernandez

Frances Schreiberg

171- 12th Street Oakland, California 94607 (510) 302-1000 (877) 995-6372 toll free Drop by and visit our website at www.kazanlaw.com Kazan Law: Helping Asbestos Victims Since 1974

We proudly support WORKSAFE at www.worksafe.org


In memory of all those we have lost to asbestos . . . In honor of our clients, the Asbestos Disease Awareness Organization and all those who continue to fight against asbestos and its related diseases — we are proud to support the ADAO’s 6th Annual International Asbestos Awareness Conference.

Brayton Purcell LLP Attorneys Helping People

w w w. b r a y t o n l a w. c o m


Salutes and Congratulates the

Asbestos Disease Awareness Organization for its

Continuing efforts on behalf of all Asbestos victims and their families We are proud to support the

2010 Asbestos Awareness Day Conference 121 South Broad Street, 21st Floor Philadelphia, PA 19107 (215) 735-6677

5434 King Avenue, Suite 202 Pennsauken, NJ 08109 (856) 427-9527

1-877-743-4652 www.sheinlaw.com


We congratulate ADAO on their 6th annual Conference as you commemorate and come together with hopes of cure, treatment, and resolution. We dedicate this Tribute page to all victims of asbestos related diseases and to their families

www.elslaw.com

=============================================== ===============================================

DeLuca & Nemeroff, LLP would like to salute the continuing efforts of Dr. Richard Lemen towards improving working conditions and public health around the world.

Houston | Dallas | Pittsburgh www.delucanemeroff.com 866.435.1831


Congratulations to the 2010 Asbestos Disease Awareness Honorees Wylder Corwin Kelly LLP 207 E. Washington, Suite 102, Bloomington, IL 61701 Phone:(309) 828-5099 www.wcklaw.com


THE INTERNATIONAL ASSOCIATION OF HEAT AND FROST INSULATORS AND ALLIED WORKERS Salutes

The Asbestos Disease Awareness Organization We are pleased to extend congratulations to all the Honorees With Special Recognition to Our Good Friends

Senator Richard Durbin and Dr. Hedy Kindler Our organization is proud to join with ADAO in their efforts to end Asbestos exposure and support the good doctors working to find a cure.

JAMES A. GROGAN

JAMES P. McCOURT

General President

General Secretary-Treasurer

INTERNATIONAL VICE PRESIDENTS William Mahoney Kenneth Schneider Fred DeMartino

Terry Lynch Doug Gamble Terry Larkin Greg Revard

Fred Clare Mark Selby Vince Engel

INTERNATIONAL REPRESENTATIVES Robert Hall

Eugene Leclerc

Tom Haun

Affiliated with the AFL-CIO, Building and Construction Trades Department, Metal Trades Department and Canadian Labour Congress


SALUTES The

ASBESTOS DISEASE AWARENESS ORGANIZATION FOR ITS VITAL, UNIQUE AND EFFECTIVE WORK

AS AN ADVOCATE FOR VICTIMS OF ASBESTOS EXPOSURE AND THEIR FAMILIES.

As long-time defenders of asbestos victims, Public Justice joins ADAO in its determined fight to right wrongs, educate the public, secure justice for victims and hold offenders accountable.

W WEE EEXXTTEEN NSS TTO O TTH ND HIISS YYEEAARR’’SS H DH HEEAARRTT--FFEELLTT C HO ON NO CO ORREEEESS.. ON NG GRRAATTU ULLAATTIIO ON

is dedicated to using trial lawyers’ and other attorneys’ skills and resources to advance the public good, Public Justice is supported by – and can call on – a nationwide network of more than 3,000 of the nation’s top lawyers to pursue precedent-setting and socially significant litigation. It has a wide-ranging litigation docket in the areas of consumer rights, worker safety, civil rights and liberties, toxic torts, environmental protection, and access to the courts. Public Justice is the principal project of The Public Justice Foundation, a not-for-profit membership organization headquartered in Washington, DC, with a West Coast office in Oakland, California. To learn more about Public Justice or to join and support us, visit us on the web at www.publicjustice.net


In Appreciation for ADAO’s Steadfast Leadership and Advocacy as the Leading “Voice of the Victims,” & for ADAO’s Support of the “Protecting Workers on the Job Agenda: Seven Priorities for Federal Action in 2009” In solidarity, Occupational Health & Safety Section American Public Health Association


ENVIRONMENTAL INFORMATION ASSOCIATION The Association’s multi-disciplinary membership will collect, generate and disseminate information concerning environmental health hazards to occupants of buildings, industrial sites and other facility operations.

EIA Salutes the work of the ADAO The Environmental Information Association applauds the good work of the Asbestos Disease Awareness Organization. We support the mission of the ADAO, and pay tribute to the unfortunate victims of asbestos disease and their families.

T h e E nvi r o n me n ta l I nf o rm a ti o n Association, with its beginnings as the National Asbestos Council, has spent 25 years at the forefront in providing the environmental industry with the i n f o r m a ti o n n e ed e d t o r em a i n k no wl ed geab le, re sp on si bl e, a nd competitive in the environmental health and safety industry. ENVIRONMENTAL INFORMATION ASSOCIATION 6935 Wisconsin Avenue, Suite 306 Chevy Chase, MD 20815 www.eia-usa.org Phone: 888-343-4342 Fax: 301-961-3094 Email: info@eia-usa.org


ASBESTOS VICTIMS SUPPORT GROUPS FORUM – UK

The Asbestos Victims Support Groups Forum – UK congratulates ADAO on organising its 6th International Conference. In the UK, over 4000 people die from asbestos diseases each year. Mesothelioma alone accounts for over half of the total asbestos-related deaths each year. In solidarity with all those asbestos victims represented at the ADAO conference, and on behalf of all the UK asbestos victims and their families, we extend our best wishes for a successful conference. We applaud all those individuals and organisations that are to be honoured at the conference for their work on behalf of asbestos victims.

Delegates from Manchester Asbestos Victims Support Group who attended the 2009 conference at Manhattan Beach, LA pictured with Linda & Emily Reinstein.


2009 ADAO visits Libby, Montana

http://www.asbestosdiseaseawareness.org/tributes/CARD.html On July 11, 2009 the Center for Asbestos Related Disease (CARD) hosted a community picnic to thank everyone who has contributed to fighting asbestos related diseases. Linda Reinstein, ADAO Co-founder and Executive Director, along with Margy Urnberg, ADAO National Representative Director and former resident of Libby, enjoyed the delicious BBQ, potluck, warm hospitality and great conversations that confirmed a reassuring message for all victims that resonated hope, importance of community, and the excellent care given by CARD. The CARD spirit and commitment to ban asbestos, fund new treatments and research for a cure not only for Libby, but also for victims throughout the United States was clearly heard and felt. ADAO also visited the Community Asbestos Memorial Project (CAMP), which was established to set up a permanent memorial site that would take the place of the white crosses. The goal was to have a permanent memorial that told the story of Libby, but also presented a vision of hope and symbol of the community moving forward. A few dedicated individuals donated all the work and copper roof. The pavilion below was completed in 2007.

http://www.asbestosdiseaseawareness.org/tributes/CAMP.html


A Call for the Americas – Ban Asbestos Now! Over the last century throughout the Americas, exposure to over 110 million tonnes of asbestos has destroyed lives, contaminated the infrastructure and polluted the environment. i The asbestos risk to human health has been widely acknowledged by international agencies tasked with protecting public and occupational health as well as by independent scientists and medical professionals.ii Asbestos has been classified by the International Agency for Research on Cancer as a human carcinogen; this assessment is supported by the International Labor Organization (ILO) and the World Health Organization (WHO), both of which believe that the future use of asbestos should be banned. Eminent groups representing civil society in the Americas also advocate action on asbestos: • • • •

the Canadian Cancer Society called for national prohibitions on asbestos use and exports (2007);iii the Canadian Labor Congress issued a resolution supporting global action to ban asbestos (2008);iv the U.S. Environmental Protection Agency and the National Institute for Occupational Safety and Health advocate an asbestos ban in U.S. workplaces; the American Public Health Association urged Congress to ban the trade and use of asbestos (2009).v

While only a few countries in the Americas have banned its use (Argentina, Chile and Uruguay), some conscientious authorities have taken unilateral action.vi On January 29, 2009, Brazil’s Minister of the Environment prohibited the use of asbestos throughout his agency; within months, Brazil’s Ministers of Health and Culture followed suit. In April 2009, the U.S. Acting Surgeon General urged “every American to become aware of the public health issues of asbestos exposures and the steps they can take to protect their health.” “There is,” he said “no level of asbestos exposure that is known to be safe.”vii Since 2000, groups representing civil society throughout the Americas have worked together to quantify national legacies and delineate efforts to minimize hazardous exposures.viii As a result of this research, we conclude that: • • • •

it is not possible to use asbestos safely; the only “safe use” of asbestos is no use; the use of asbestos and asbestos-containing products is unjustifiable, unsustainable and uneconomic;ix safer products exist and should be used; the transfer of asbestos technology and the dumping of asbestos exports from the Northern to the Southern Hemisphere is a violation of human rights.

On behalf of our fellow citizens of the Americas, we call on global organizations, regional bodies, and national authorities to support moves to ban asbestos throughout North, South and Central America. Given that the right to health is inviolate and that exposure to asbestos can be fatal, it is beyond doubt that the steps taken to date by regional bodies such as the Organization of American States, the Pan American Health Organization, Mercosur (the Southern Common Market), the Andean Community and the majority of national governments have been woefully inadequate. As a matter of urgency, all Pan American regulatory bodies and governments should follow the WHO and the ILO and adopt policies calling for asbestos to be banned. Working with international bodies, they should set a timetable, no more than 2 years, for the implementation of asbestos prohibitions, delineate a strategy for achieving this objective, adopt a just transition for affected workers, and ensure that support and medical care for the asbestos-injured is provided. We urge official bodies to work closely with those most affected by the asbestos epidemic – the asbestos victims – in all negotiations and consultations. Representatives from the U.S., Canada, and Brazil gathered together in Chicago on the occasion of the 6th annual meeting of the Asbestos Diseases Awareness Organization on April 10, 2010 declare our support for this call to action. Having consulted with colleagues throughout our continents, we are confident that the statements expressed herein are an accurate representation of the current asbestos reality in the Americas. To end the needless slaughter, an immediate commitment to ban asbestos, accompanied by a detailed action plan for achieving this objective, is essential; the citizens of the Americas have the right to live a life free of asbestos pain and death. Written: Laurie Kazan-Allen, International Ban Asbestos Secretariat, UK Linda Reinstein, Asbestos Diseases Awareness Organization, U.S. Fernanda Giannasi, Brazilian Association of People Exposed to Asbestos (ABREA), Brazil Pat Martin MP, Canada *Translated and available in Portuguese, French, and Spanish


Signed as of March 16 2010: Mariano Acevedo, President ASAREA, Argentina John Flanagan, on behalf of the Merseyside Asbestos Ilaria Agostini, Puerto Iguazu, Argentina Victims Support Group, Liverpool, UK Cuauhtemoc Arturo Juárez Aguilar. MD, MSc- México Sugio Furuya, Ban Asbestos Network Japan (BANJAN) and Guadalupe Aguilar Madrid. MD,MSc.PhD. Mexico Asian Ban Asbestos Network (BANJAN) Rosana Aparecida, Pereira de Lima, Itapira, São Paulo Ken Geiser, Professor, Work Environment, University of Juan Ignacio Areta, La Plata, Buenos Aires, Argentina Massachusetts, Lowell Conrad Atkinson, Emeritus Professor, University of Demetrio Giourgas, Electrotecnico Bahia Blanca, Argentina California Morris Greenberg, MB FRCP FFOM. Extramural - UK Tom Balint, Labourer, Welland Ontario Canada Margaret Harrison Professor Manchester Metropoilitan Jaime Ortiz Bazan, AFA PEART, Peru University Eileen Beadle, ELMS-East London Mesothelioma Support Dr. Andy Higgison, sociologist, historian, Strathclyde Lucie Bechard, Victims of Asbestos & Industrial Disease, University and Glasgow Caledonian University, Glasgow, Ontario, Canada Scotland Rubén Belandia, STEE-EILAS basque trade union's Gerald Hodgson, Retired CAW Social Activist, Lakefield, member, Bilbao, Spain Canada Karl Beveridge, visual artist, member Canadian Artist Mick Holder, CMIOSH, FRSPH, London, England Representation (CARFAC), Toronto, Canada Ingrid Holzmann, La Plata, Buenos Aires, Argentina Brad Black, MD, Medical Director, Center for Asbestos Paul Jobin, Director, CEFC Taipei office, Associate Related Disease (CARD), Libby, Montana Professor, University of Paris Diderot Ken Bondy, CAW National Coordinator Eric Jonckheere, Co-President, ABEVA, Belgium Dan Boone, President, Dankei Safety Solutions, Retired Nat. Lopez Josefa, Argentina Esoaña H & S Coordinator CAW Mara Kardas-Nelson, Editor, New Solutions, U.S. George Botic, Retired CAW Canada Staff Member, Canada Richard Kamler, Artist, Professor of Art, University of San Karoli Martínez Bottini, Puerto Ordaz, Edo. Bolivar, Francisco Venezuela Steven Kazan, Managing Partner, Kazan, McClain, Lyons, Terry Britton, asbestos victims support group forum Greenwood & Harley Bradford, England Amanda Jane Kearney, Caregiver of Mesothelioma Patient, John Campbell, Retired Auto Worker Perth, Australia Helen Clayson, Chair & Founder, Barrow Asbestos-Related Michael Lees, Asbestos in Schools Group, Great Britain Disease Support (BARDS), UK Dave Leonard, Plant Chair, C.A.W. Local 1575 Hamilton Carole Condé, visual artist, member Canadian Artist (Ontario Canada) Representation (CARFAC), Toronto, Canada Charles Levenstein, Ph.D., M.S.O.H., Professor Emeritus, Kenneth A. Cook, President, Environmental Working University of Massachusetts Lowell Group Terry Lynch, International Vice President, International Steve Cronkright, Business Manager- S.M.W.I.A Local 269 Association of Heat & Frost Insulators & Allied Workers Kingston Ontario (formerly Asbestos Workers Union) Jim Crow, Health & Safety, CAW Local 302 London, Rob MacAloney, President, C.A.W. Local 1575 Hamilton Ontario Canada (Ontario Canada) Mark Curtis, Business Manager - SMWIA Local 276, Mike Mahon, Business Manager - S.M.W.I.A. Local 235 Vancouver Island Windsor/Chatham Dr. Ana Digón, Medical Toxiologist, JTP de la Primera Steve Mantis, Ontario Network of Injured Workers Groups, Cátedra de Toxicología, Facultad de Medicina, University of Canada Buenos Aires, Argentina Frank Marek Retired CAW Nat., H&S Coordinator Carol Duerden Bradford Asbestos Victims Support Group Talita Maryelle de Lima Bigi - Jacutinga- MG Louis Duguay, Business Manager Heat & Frost Insulators Eder José de Mattos, Itapira, São Paulo Local 131, N.B. Naia Loren de Lima Mattos, Itapira, São Paulo Peter Dunn, Director and Lead Artist, ART.e @ the art of Chris McLaughlin, Business Manager- S.M.W.I.A Local 562 change, 6 Container City, Trinity Buoy Wharf, 64 Orchard Kitchener Ontario Place, London E14 ) JW, UK Rob McLean, CAW Local 200 Retired Workers Chapter David Egilman, MD, MPH, Clinical Associate Professor, TC McNamara, CEO, The John McNamara Foundation Brown University Bob Mensforth, Canadian Auto Workers Local 468, Lyn Eldridge, Asbestos victim and Roy Eldridge, carer. Winnipeg, Canada Cumbria , England Mike Merritt, Portsmouth Area Works Hazards Group Natalia Fente, ASAREA, Argentina John Messham, Lawyer, Plymouth, Devon, UK Jim Fite, formerly of the White Lung Association. U.S. Vernon Mogensen, Ph.D., Kingsborough Community Sean Fitzgerald, PG: President, Scientific Analytical Institute College, The City University of New York Lía Montti, Puerto Iguazú, Misiones, Argentina


Claudio ´César Montoto- São Paulo José Roberto de Moraes Bigi - Jacutinga- MG Valeria Nacif, anthropologist, teacher, Tilburg, Netherlands. Salvator Nay, Belgian TV current affairs film director (retired) Mara Kardas-Nelson, Editor, New Solutions' The Drawing Board, Zuleica Nycz, Toxisphera, Health Environmental Association - Brazil Sean O'Driscoll, Business Agent, CAW Local 2301 Joe O'Neil, Clydebank Asbestos Group, Scotland Tania Pacheco - pesquisadora e militante do GT Combate ao Racismo Ambiental - Rio de Janeiro, Brasil. Alice Palandi, Itapira, São Paulo Agustin Paviolo, Puerto Iguazú, Misiones, Argentina Maria Lúcia Franco Pereira , Itapira, São Paulo Tim Pringle, Industrial Relations Researcher, London, UK John A. Pula, Retired Canadian Auto Workers Health & Safety Rep. at General Motors, St. Catharines, Ontario Bill Ravanesi, Health Care Without Harm, U.S. Bernardo Reyes, President, Etica en los Bosques, Chile Gilles Rivard, Operator, Chrysler Canada, Brampton Assembly Plant, Ontario, Canada Dr. Eduardo Rodriguez, Medical Specialist in Workers’ Health (Médico especialista en Medicina del Trabajo), Buenos Aires, Argentina Sonia Rodriguez, Argentina Eva Delgado Rosas AFA-PEART, Peru Beth Rosenberg, ScD, MPH, Tufts University School of Medicine, Boston, MA Kathleen Ruff, RightOnCanada, Canada Vilma Sousa Santana, Professor, Institute of Collective Health, Federal University of Bahia, Coord. of the Program of Environmental and Workers Health Jeff Sawtell, Concept Engineer, TheArt.ThreAt, UK Dr. Edith Seligmann-Silva, S.Paulo-Brasil Sheffield And Rotherham Asbestos Group Graham Sherlock-Brown, Mesothelioma victim, now retired, Solihull, UK Joel Shufro, Executive Director, NYCOSH i

Eduardo Siqueira, University of Massachusetts Lowell Eliezer João de Souza, ABREA, Osasco – SãoPaulo, Brazil Margot Squarzon, Buenos Aires, Argentina Leandro de Souza, Alves Machado, Sociólogo, Brasil Maria do Carmo Vieira de Souza - AMEA, Contagem Minas Gerais Leslie Thomas Stayner, PhD, Professor and Director, Division of Epidemiology and Biostatistics, School of Public Health, University of Illinois, U.S. Bob Stephenson, Northeast Asbestos Support and Awareness Group, UK Larry Stoffman, on behalf of the Executive of Ban Asbestos Canada Kimberley Stubbs, The June Hancock Mesothelioma Research Fund, UK Warren Teel, MD, Occupational Health Clinics for Ontario Workers Dr. Annie Thebaud-Mony, Ban Asbestos France and Henri Pezerat Foundation for Occupational and Environmental Health, France Diego Torres, Buenos Aires, Argentina Dominick Tuminaro, Professor, Brooklyn College Graduate Center for Worker Education Silvana Rubano Turci, researcher, Oswaldo Cruz Foundation, Health Ministry, Rio de Janeiro, Brazil Jesus Mª Uzkudun Illarramendi Secretario de Salud Laboral y Medio Ambiente CCOO Euskadi Rosa vda. de Vazques, Apeva, Peru Philip Venoit, Business Manager - International Brotherhood of Electrical Workers Local 230 Vancouver Island Paula Walker, Sheffield & Rotherham Asbestos Group, UK Louis Walsh, Regional representative, CAW Council 4000 Joy Wheeler, Simmons Mesothelioma Foundation Tony Whitston, Asbestos Victims Support Groups Forum – UK Zulmiar Yanri MD, PhD, OM, Indonesia - OSH Professional Cecília Zavariz, Inspector Physician of the Ministry of Labor and Employment, Brazil

In an email received on January 28, 2010, Robert Virta of the U.S. Geological Survey estimated that total asbestos consumption in North America and South America was 42.82 million tonnes between 1900 and 2008. He estimated that since 1900 North American production (and sales) of asbestos was 66 million tonnes and South American production (and sales) was 4.6 million tonnes. ii Asbestos Policies of Major International Agencies. 2009 http://ibasecretariat.org/lka_asb_polic_maj_int_agencies.php iii http://www.ibasecretariat.org/lka_2_steps_forward_5_back.php iv http://www.ibasecretariat.org/lka_asb_uproar_canada.php vAPHA document: The Elimination of Asbestos. November 10, 2009. http://www.apha.org/NR/rdonlyres/EB4545B4-C728-4B1F-9DD0-F11E4D0737D5/0/AsbestosDraftNov102009.pdf vi In Brazil, four states and several municipalities have banned asbestos. vii Statement from Acting Surgeon General Steven K. Galson about National Asbestos Week. http://www.surgeongeneral.gov/news/pressreleases/pr20090401.html viii The efforts of the ban asbestos campaign, which includes asbestos victims, asbestos victims’ support groups, trade unions, environmental bodies, public health and environmental activists, academics and concerned individuals, have been documented on the website: http://www.ibasecretariat.org ix When costs such as healthcare and social security for the injured and the bill for decontamination and disposal of toxic waste are factored into the equation, the initial cost advantage of asbestos products evaporates.


Landmark Asbestos Trial in Italy by Laurie Kazan-Allen Asbestos victims, legal and medical experts from Europe, Latin America and Asia gathered in Turin on March 2010 to show their solidarity with the thousands of asbestos victims on behalf of whom a class action has been mounted against former asbestos executives from multinational corporations belonging to the Eternit Group. In roundtable discussions and during the press conference on March 15 and at the one-day conference on March 16, the duplicitous behavior of Eternit companies in Italy, Peru, France, Switzerland, Belgium, the Netherlands and India was highlighted. The consensus was clear: this trial must be won! The landmark criminal case launched in Italy in December 2009 by Turin Prosecutor Dr. Guariniello is against Stefan Schmidheiny and De Cartier De Marchienne Louis who worked for the Swiss and Belgian Eternit companies. 1 Progress is frustratingly slow as hearings only take place for five hours on a Monday and on occasions, such as March 15, the court proceedings are cancelled. The importance of bringing together so many asbestos victims’ representatives and ban asbestos activists in Turin was obvious from the wealth of detailed information which was exchanged about the corporate negligence at Eternit sites all over the world, the existence of double standards in developed and developing countries, the strategic discussions which took place in Turin and the decisions which were made to provide practical assistance and information to the prosecutors. Organizer Annie Thébaud-Mony from Ban Asbestos France and the International Ban Asbestos Network expressed the feelings of many delegates when she said: ‘‘Eternit developed a global strategy to delay the revelations of the harmful effects of asbestos. It continued this practice and even built new factories around the world to produce, use and sell asbestos long after the use of asbestos had been banned in Europe.” Laurie Kazan-Allen who participated in these events on behalf of the International Ban Asbestos Secretariat concurred: “People in Turin and the surrounding area know only too well the consequences of working for Eternit. Thousands of people in Casale Monferrato and other Italian towns have died from their occupational and environmental exposures to Eternit asbestos. Considering that hazardous exposures experienced in Italy were replicated elsewhere, there must be hundreds of thousands of people who have died from their exposures to this company’s asbestos products. The time has come for Eternit to be brought to account.” The trial continues.2

1

Eternit on Trial! January 28, 2010. http://ibasecretariat.org/lka_eternit_on_trial.php 2 http://asbestosinthedock.ning.com/


m.

Delivering asbestos disease awareness information to the world‌.

Asbestos Disease Awareness Organization TV Available now at adaotv.com

Viewers anywhere in the world can now access ADAO’s Asbestos Video Library 24 hours a day, 365 days a year, from any internet connected computer. The library currently includes all sessions of the 2007, 2008 and 2009 Asbestos Disease Awareness Conferences and will contain all of the sessions from the 2010 Asbestos Disease Awareness Conference as well.

ADAO TV is powered by ZeelTV On the web at www.zeeltv.com


Congratulations to the

CARD Clinic! Cross Country Films would like to thank the staff and volunteers of the CARD Clinic for their noble perseverance and tireless support for the community of Libby, and for their continued contributions to our common goals to end asbestos exposure and care for it’s victims.

Serpent in the Rock is a documentary film, premiering in 2011, illuminating the unfolding health disaster in the wake of September 11th as foretold by the events in Libby. To inquire about tax-deductible contributions to enable completion of the film, please email info@CrossCountryFilms.com or call Brad DeCecco at 917-882-5208.


The 10th International Conference of the International Mesothelioma Interest Group

http://www.congre.co.jp/imig2010/


ADAO Asbestos Awareness Committee 6th Annual Asbestos Awareness Conference April 9 - 11 Marriott Renaissance Hotel Chicago, Illinois Event Chairperson Bonnie Diana Committee Chairpersons Science Advisory Board Co-Chairs

Arthur L. Frank, MD, PhD Richard Lemen, PD, MSPH

Communications

Doug Larkin

Agenda & Sponsorship

Linda Reinstein

Barbara Ann Karmanos-Communications

Linda Remington and Patricia Ellis

Barbara Ann Karmanos Cancer Institute

Dr. Michael Harbut

Executive Assistant and Registration

Herman Hamilton

International Ban Asbestos Secretariat

Laurie Kazan-Allen

Medical Outreach

Josh Zygielbaum

National Spokesperson

Jordan Zevon

Family Tributes

Marilyn Amento

Program

Margy Urnberg

Registration Assistants

Kate Diana & Caitlin Burton

Speaker Assistant

Emily Reinstein

Speaker Liaison and Unity and Hope Brunch

Sharry Erzinger

Videographer

Sue Ann Taylor, Zeel TV

Volunteer Coordinator

Debbie Granow

Website

Ellen Tunkelrott

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, Prevention, Support and a Cure" 1525 Aviation Boulevard, Suite 318 路 Redondo Beach 路 California 路 90278 路 310.437.3886 www.AsbestosDiseaseAwareness.org


Keep Me In Your Heart By Warren Zevon

Shadows are falling and I'm running out of breath

You know I'm tied to you like the buttons on your blouse

Keep me in your heart for awhile

Keep me in your heart for while

If I leave you it doesn't mean I love you any less

Hold me in your thoughts, take me to your dreams

Keep me in your heart for awhile Touch me as I fall into view When you get up in the morning and you see that crazy sun

When the winter comes keep the fires lit

Keep me in your heart for while

And I will be right next to you

There's a train leaving nightly called when all is said and done

Engine driver's headed north to Pleasant Stream Keep me in your heart for while

Keep me in your heart for while Sha-la-la-la-la-la-la-li-li-lo

These wheels keep turning but they're running out of steam

Keep me in your heart for while

Keep me in your heart for while

Sha-la-la-la-la-la-la-li-li-lo

Sha-la-la-la-la-la-la-li-li-lo

Keep me in your heart for while

Keep me in your heart for while

Sometimes when you're doing simple things around the house

Sha-la-la-la-la-la-la-li-li-lo Keep me in your heart for while

Maybe you'll think of me and smile Keep me in your heart for while

Lyrics reprinted with permission. Š 2003 Zevon Music (BMI) / Googolplex Music (BMI)


Thank You from the Program Editor I would like to express my appreciation to everyone attending the conference and supporting ADAO. It has been an honor for the past 6 years to be involved with this organization. In 2005, we started our tribute pages with 4 names. Sadly, we now have more than 400. The stories and emails that we receive are heartbreaking.

The tribute pages to honor the memory of those lost can be viewed at: http://www.asbestosdiseaseawareness.org/tributes

Margy (Johnson) Urnberg


Conference Notes ________________________________________________________________________ ________________________________________________________________________ ________________________________________________________________________ ________________________________________________________________________ ________________________________________________________________________ ________________________________________________________________________ ________________________________________________________________________ ________________________________________________________________________ ________________________________________________________________________ ________________________________________________________________________ ________________________________________________________________________ ________________________________________________________________________ ________________________________________________________________________ ________________________________________________________________________ The Asbestos Disease Awareness Organization 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.437.3886 “United for Asbestos Disease Awareness, Education, Advocacy, Prevention, Support and a Cure.” www.AsbestosDiseaseAwareness.org


Conference Notes ________________________________________________________________________ ________________________________________________________________________ ________________________________________________________________________ ________________________________________________________________________ ________________________________________________________________________ ________________________________________________________________________ ________________________________________________________________________ ________________________________________________________________________ ________________________________________________________________________ ________________________________________________________________________ ________________________________________________________________________ ________________________________________________________________________ ________________________________________________________________________ ________________________________________________________________________ The Asbestos Disease Awareness Organization 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.437.3886 “United for Asbestos Disease Awareness, Education, Advocacy, Prevention, Support and a Cure.” www.AsbestosDiseaseAwareness.org


7th Annual Asbestos Awareness Conference      Advances to Prevent, Detect and Treat Asbestos‐Related Diseases      April 1 – 3, 2011    Atlanta Marriott Buckhead Hotel, Georgia    

The Asbestos Disease Awareness Organization    ʺUnited for Asbestos Disease Awareness, Education, Advocacy, Prevention, Support and a Cureʺ 

  1525 Aviation Boulevard, Suite 318 • Redondo Beach • California • 90278 • 310.437.3886    Registered 501(c) (3) nonprofit organization    www.AsbestosDiseaseAwareness.org


2010 Asbestos Disease Awareness Organization International Asbestos Awareness Conference Program