【弦愛‧綠韻】慈善演奏會 Lifewire Charity Concert 2024 ft. The SAR Philharmonic Orchestra

節目表 Programme

開幕典禮

Opening Ceremony

艾爾加 -《晨之歌》作品 15 No.2

及《夜之歌》作品15 No.1

Edward Elgar - Chanson de Matin Op.15, No.2 and Chanson de Nuit Op.15, No.1

流沙繪影

馬冠平沙畫藝術家、賴君怡、白晞佑和楊嘉瑩

Sand Painting

Reliant Ma, Lai Kwan-Yi, Bux Hei-Yau Annie & Yeung Ka-Ying Kiki

聖桑 - G大調音樂會小品，為豎琴與管弦樂團而作，作品154

Camille Saint-Saëns - Concert Piece for Harp and Orchestra in G major, Op. 154

楊柳依 - 豎琴 Lauyee Yeung – Harp

中場休息20分鐘 Intermission 20 minutes

孟德爾遜 - A小調第三交響曲，作品56，《蘇格蘭》

Felix Mendelssohn-Bartholdy - Symphony No. 3 in A minor, Op. 56, “Scottish”

香港愛樂團 SAR Philharmonic Orchestra

趙啟強 音樂總監及指揮 K. K. Chiu, Music Director and Conductor

各位觀眾：

場地規則 House Rules

為了令大家對今次演出留下美好印象，我們希望各位切勿在場內攝影、錄音或錄影，亦 請勿吸煙或飲食。在節目進行前，請關掉手提電話、其他響鬧及發光的裝置。演奏期間 請保持安靜，留待整首樂曲完結後才報以掌聲 。多謝各位合作。

Dear Patrons,

In order to make this performance a pleasant experience for the artists and other members of the audience,please refrain from recording,filming, taking photographs, and also from smoking, eating or drinking in the auditorium.Please ensure that your mobile phones and any other sound and light emitting devices are switched off before the performance. Please keep noise to a minimum during the performance, reserve your applause until the end of the entire performance.Thank you for your kind cooperation.

P.2

P.4

目 Content

關於香港愛樂團 About SAR Philharmonic Orchestra

關於Lifewire《護‧聯網》

About Lifewire

透視罕見病 Decipher Rare Diseases

P.7 兄弟同患黏多醣 媽媽:只想再聽哥哥叫「媽媽」

P.8

P.3

P.5

愛樂團主席的話 - 林孝煌脊醫 Message from Dr. Alex Ling Chairman of SAR Philharmonic Orchestra

Lifewire創辦人的話彭一邦博士工程師太平紳士

Founder’s Message - Ir Dr. Derrick Pang, JP

Brothers suffer from MPS, ”I want to hear my elder son call me ‘Mom’ again.” Mrs. Hui

半癱少女愛探險

Semi-paralyzed teenage girl loves adventure

男孩瀕失明走向黑暗 母克服抑鬱點亮生命

Boy on the brink of blindness; mother overcomes depression to illuminate life

追夢脊髓肌萎少女：就算只剩雙眼，都想生存！

Determined girl with SMA pursues dreams: even if only my eyes remain, I want to survive!

P.9 肌萎小勇士　輪椅無阻我世界

Muscular Dystrophy warrior - wheelchair doesn’t stop my world

容易脫骹的「小丸子」：我想做開心人！

Girl with Developmental Dysplasia: I want to be a happy person!

P.10

骨骼變形 器官受損

黏多醣症男孩：我不放棄！

Boy suffers from deformed skeleton and damaged organs: I won’t give up

脊髓肌肉萎縮女孩 越過生死線 盼做女作家

SMA girl crosses the line between life and death, aspires to become a writer

P.11

母子同病變 無懼連環醫療失誤 勇抗不治症

Mother and son defy genetic mutation, overcome medical challenges in fight against incurable illness

抽搐無間「植物」男孩 媽媽：不求生命闊度 只求延長壽命

Vegetative boy with constant twitching Mother’s goal: prolonging life

P.12

不治症女兒日復日退化 媽媽：等你說愛我

Daughter with incurable disease - degenerating day after day Mom: I am waiting for you to say you love me

如何幫助罕見病患者

How to help patients with rare diseases?

P.13 趙啟強 音樂總監及指揮 Introduction of K. K. Chiu, Music Director and Conductor

P.15

節目介紹 Programme Notes

P.14

P.18

Lifewire CSR program

P.46

P.49

Lifewire Donation Form

楊柳依 豎琴演奏家 Introduction of Lauyee Yeung, Harp

弦裳綠造

流沙繪影 Used clothes regeneration Sand Painting

香港愛樂團演出名單 List of SAR Philharmonic Members

鳴謝 Special Thanks

關於香港愛樂團

About SAR Philharmonic Orchestra

香港愛樂團是由一群業餘音樂愛好者組成的慈善團 體。它成立的目標是：透過美妙動人的音樂，幫助有需 要的社群。一直以來，樂團都朝著這個目標進發，以舉 辦募捐音樂會的方式，為多個慈善機構籌募善款。

香港愛樂團是香港愛樂慈善基金會的音樂組織，屬於 香港政府註冊的非牟利慈善團體。自1999年起，樂團 每年都會舉辦多場音樂會，迄今已為本地的民間慈善 團體，籌得超過六千萬港元的善款。

擁有超過100位成員的香港愛樂團陣容完整，勇於挑

戰難道極高的曲目，而成員亦秉著為善最樂之心，慷 慨獻出他們的時間和精神，盡力為各慈善團體募捐。

在音樂總監趙啟強先生的指揮下，樂團曾演奏過馬勒 全部交響曲。此前的音樂會曲目，亦包括了多首古典 鉅作。

於2023年7月，樂團首次在海外演出。樂團成員 自費前往德國10天，與兩個德國社區管弦樂團－ Lufoniker BASF 管弦樂團以及海德堡 Auftakt 管 弦樂團合作，舉辨3場音樂會，為當地的醫院和音樂學 校籌款。各場音樂會皆非常成功，坐無虛席；觀眾反應 熱烈，而且表示受樂團的音樂以及樂手的熱誠打動。

The SAR Philharmonic Orchestra (www.sarpo. org) has a simple goal: Helping to lessen suffering through Sweet And Romantic music. This is mostly carried out by presenting concerts for fund raising by other charitable organizations.

The SAR Philharmonic Orchestra is the musical arm of the SAR Philharmonic Charitable Foundation Limited, a Hong Kong Government registered Charitable Foundation. The orchestra performs several concerts a year and since the first concert in 1999 over $60 million have been raised for local charities.

Orchestra members are dedicated volunteers who give their services freely – thus maximizing the financial benefits for the recipient charity. The orchestra boasts over 100 members and presents ambitious programs for full symphony orchestra. Under the baton of our Music Director K. K. Chiu, we have performed some 150 concerts including the complete symphonic cycle of Gustav Mahler.

In July 2023, our orchestra had our first very successful international ten day tour to Germany. Members travelled at their own expense to play in 3 concerts, partnering with two German community orchestras - Lufoniker BASF orchestra in Ludwigshafen and Auftakt Orchestra in Heidelberg, raising funds for local hospitals and music schools.

https://www.sarpo.org/

愛樂團主席的話 - 林孝煌脊醫

Message from Dr.Alex Ling

Chairman of SAR Philharmonic Orchestra

It gives me great pleasure to present tonight’s fund-raising concert for our special charity partner, Lifewire. They unite patients, medical experts, donors and volunteers together as a community to raise funds and provide services for the needs of children with rare diseases.

SARPO have prepared music to help tell these patients’ stories tonight. It is our hope you will also be moved by their enduring passion for life which inspires all of us to do our part to help and support them.

SARPO will begin by playing Edward Elgar’s “Chanson de Matin” and “Chanson de Nuit”. These two nature inspired pieces will be the live

background music to tonight’s unique story presentation.

We will continue with the enchanting sound of the harp with Saint-Saen’s Morceau de concert written for Harp and Orchestra. We have the honor to feature one of Hong Kong’s top harpist Ms. Lauyee Yeung as our soloist.

Post-intermission, the enduring power of nature and life is conjured up through Felix Mendelssohn’s Scottish Symphony. It took 13 years for him to write this work, from 18291842. You will hear many sounds that will remind you of the Scottish countryside and its power of nature, as well as Scottish folk music where Mendelssohn drew much of his inspiration.

I’m very excited for all of us as tonight will definitely be a memorable concert experience for performers and audience alike.

Alex Ling Chairman SAR Philharmonic Orchestra

關於Lifewire《護‧聯網》

About Lifewire

《護 · 聯網》慈善基金有限公司是香港首個專為罕見病患者籌款的眾籌平台，於2014年由俊和發展集團創立， 現時獨立運作。我們以文字和影片呈現病患者的處境，並支援他們紓解困局。

護‧聯網與香港愛樂團合辦的《弦愛‧綠韻》憑「綠」寄意，寓意罕見病童的生命力如綠草般堅韌、蓬勃；同時帶 出友善地球、環保再生的理念。

Lifewire Foundation Limited, founded in 2014 by Chun Wo Development Holdings Limited, is Hong Kong’s very first crowdfunding platform for children with rare diseases. Through documenting and sharing patients’ stories with the public, Lifewire strives to raise funds to support patients’ medical needs and to promote an inclusive society through rare disease education.

In 2024, Lifewire once again co-organized the “Lifewire Charity Concert 2024” with the SAR Philharmonic Orchestra. The theme of this year’s concert is “Green”, symbolizing the vitality and resilience of children with rare diseases, as well as promotion environmental friendliness and protection.

直至2023年底，

《護・聯網》籌得善款

As of 2023, Lifewire has raised funds

受惠家庭

Beneficiaries

重點支援

Critical support

逾2,700萬

HK $27 million

900個(逾3,000人)

Over 900 Families(Over3,000 individuals)

42個案Case

Lifewire籌款目標及理念

Vision & Mission of Lifewire

喚醒關注罕見病

Raise public awareness of rare diseases

Fundraise for children with rare diseases

關於《護 · 聯網》 About Lifewire www.lifewire.hk

Promote social inclusion

「香港愛樂團」再度與Lifewire「護‧聯網」攜手為罕見病病童籌款，作為Lifewire創辦人，我 由衷感謝樂團一直以來鼎力支持機構，與我們同行。適逢Lifewire邁向十周年，今屆演出主題 《弦愛‧綠韻》憑「綠」寄意，比喻機構十年前為愛播下種籽，到今天長成綠葉，而一眾罕見病病童 的生命力則有如綠草般堅靭、蓬勃，同時帶出友善地球、環保再生的理念。我們期望透過活動，做 到以愛相傳，讓孩子茁壯成長。

近日，機構的服務對象、患有杜興氏肌肉營養不良症的陳梓鍵，積極將自己的經歷紀錄，與媽媽拍 攝「那些我們感謝的人」專輯，我有幸獲邀參與，與梓鍵見面，聆聽他的故事。事後反覆思量，其實 一眾病友才是我要感謝的人。

許多罕見病病患者面對生命比別人更無常的命運，不但沒有自怨自艾，反能以豁達及強大的心

靈，感受跟別人不一樣的生命溫度。我們從他們身上學習到堅毅、受到啟發。Lifewire在旁協助 罕見病病患者的同時，其實他們的毅力也一直滋養着我們。

Lifewire的成立，源於我求學時期，一次暑假做義工助殘疾人士至凌晨回家後，家父的一席話：

「你讀好你的書，做好你應該要做的事，就不只一對手幫人，而是有一百對手、一千對手 去回饋社會。」此刻，Lifewire團隊雖只有幾對手，但於大家的愛護及支持下，正漸漸凝聚社會的 力量，讓曾被社會遺忘的一群重拾溫暖。

Lifewire成立至今，共籌得逾2,700萬港元善款，一路走來有900個家庭、逾3000人受惠，實在有 賴在座每一位。你們的幫助除了令Lifewire有更多資源服務有需要人士，也令香港變成一個更 有愛的地方。

懇請大家繼續支持我們，祝各位有個愉快的晚上！

彭一邦博士工程師太平紳士

Founder's Message – Ir Dr.Derrick Pang,JP

Together with The SAR Philharmonic Orchestra, Lifewire is once again organizing a remarkable charity concert for children with rare diseases. As the founder of Lifewire, I want to express my heartfelt gratitude to the orchestra, our amazing and long-standing partner. This year, Lifewire is approaching its significant 10-year milestone. To mark this special occasion, we’ve chosen the concert theme“Green”, which not only reflects our journey and growth over the years but also symbolizes the resilience and vitality of children with rare diseases, while promoting environmental friendliness and protection. Our goal is to foster love and care within the community to nurture our incredible children.

One of our inspiring service users, Chan Tsz Kin, a young male patient with Duchenne Muscular Dystrophy, along with his mother, is documenting his extraordinary journey in a project called“Those I Am Thankful For”. I am incredibly lucky to be a part of it, where he expresses gratitude to everyone who has supported him and listened to his life story. In reality, he’s the one who’s inspiring us all and deserve the applause.

Individuals with rare diseases face numerous challenges in their lives. However, their indomitable spirits and extraordinary courage shine through. Despite the challenges they face, they inspire us and truly embrace life. At Lifewire, we believe that our relationship with our services users is a two-way street. By extending our helping hand to them, they uplift us and show us what true strength is all about.

The idea behind Lifewire’s establishment was inspired by my father when I was young. After returning home late at night from

volunteering for people with disabilities, he said,“You won’t be helping alone if you study hard and work hard in your early life. You will be able to bring people to help.”Despite starting with only a few dedicated members, Lifewire is thriving and uniting stakeholders from all walks of life together, promoting social inclusion.

In the past decade, we’ve raised $27 million and provided assistance to 900 families and over 3000 individuals in need. I would like to express my deepest gratitude for all the supports and contributions that have allowed Lifewire to continue its services and spread love throughout society.

We eagerly anticipate your ongoing support, and I extend my warmest wishes to all of you for a wonderful evening. Thank you!

Ir Dr. Pang Yat Bond, Derrick, JP

透視罕見病

Decipher Rare Diseases

兄弟同患黏多醣 媽媽:只想再聽哥哥叫「媽媽」

Brothers suffer from MPS,”I want to hear my elder son call me ‘Mom’ again.” Mrs. Hui

看似簡單的願望卻是遙不可及，全因兩個兒子都患上 黏多醣症3A型。原本幸福美滿的一家四口，哥哥隨着 病情惡化，身體機能和智商退化至有如嬰兒，可能活 不過14歲。父母只希望幹細胞治療能逆轉弟弟病情。

This family of four faced a heartbreaking situation when both sons were diagnosed with Mucopolysaccharidosis type 3A. The older brother’s condition worsened, leaving him with the physical abilities and cognitive functions of an infant. Sadly, he may not live past 14 years old. The parents hold onto hope that stem cell therapy could help their younger son.

楊嘉瑩(15歲)

Yeung Ka-Ying, Kiki (Age 15)

脊柱膠質腫瘤

Spinal Cord Glioma

許偉翔(8歲) 許承皓(4歲)

Hui Wai-Cheung (Age 8)

Hui Shing-Hao (Age 4)

黏多醣症3A型

Mucopolysaccharidoses (MPS) Type 3A

半癱少女愛探險

Cause No.

Semi-paralyzed teenage girl loves adventure

我想去埃及睇金字塔、法老王墳墓， 我想探索吓呢個世界。

I want to visit Egypt to see the pyramids and Pharaoh’s tombs. I want to explore this world

出生時健康正常的嘉瑩，兩歲時遭罕見癌 - 脊柱膠質 腫瘤來襲，施手術移除腫瘤，但從此胸口以下癱瘓，伴 隨一堆後遺症。 但有限的活動能力，困不了無限的夢 想。

Despite being born healthy, Kiki faced an extraordinary challenge at the age of two: a rare cancer—spinal cord glioma. Although the tumor was surgically removed, she has been paralyzed from the chest down ever since, accompanied by a host of aftereffects. However, her limited physical abilities cannot confine her limitless dreams. “I want to visit Egypt to see the pyramids and Pharaoh’s tombs. I want to explore this world.” Kiki

Boy on the brink of blindness; mother overcomes depression to illuminate life

「下一站朗屏，跟著天水圍、兆康…」

在西鐵車廂中，11歲的博言頭也不抬，背誦出滾瓜爛熟的路 線，全因獨力照顧患有罕見病魯賓斯坦泰比症兒子的林媽媽， 希望瀕臨失明的兒子為未來做好準備：

就算佢將來睇唔到嘢唔緊要， 只要記得晒車站，都可以自己周圍去。

In the MTR, 11-year-old Pok-Yin diligently recites the well-worn route without lifting his head. His mother’s unwavering dedication stems from caring for her son, who suffers from the rare Rubinstein-Taybi syndrome. She hopes that her son, who is on the brink of losing his sight, will be prepared for the future:

Even if he can’t see things in the future, as long as he remembers the train stations, he can navigate on his own.

賴君怡 (19歲)

Lai Kwan-Yi (Age 19)

脊髓肌肉萎縮症

Spinal Muscular Atrophy (SMA) 3611 個案編號 Cause No.

林博言(13歲)

Lam Pok-Yin (Age 13)

魯賓斯坦泰比症

Rubinstein-Taybi Syndrome 3626 個案編號 Cause No.

追夢脊髓肌萎少女：就算只剩雙眼，都想生存！

Determined girl with SMA pursues dreams: Even if only my eyes remain, I want to survive!

「我覺得自己像做了一個等價交換……相比『行得走得』 但沒夢想的人，我更幸運。」

依靠輪椅、當年醫生估計只能活18年。

賴君怡只淡然一句：人終有一死！

旁人聽得痛心，女孩卻自言幸運；更矢志電腦遊戲開發。

“I feel like I’ve made an equivalent exchange… Compared to those who can walk but lack dreams, I consider myself luckier.”

Lai Kwan-yi, relying on a wheelchair, defied the doctors’ estimate of only 18 years to live. She remarked, “Everyone eventually dies!” While others felt sorrow, she saw herself as fortunate. Her unwavering pursuit of game development echoed her determination:

I will persist until I achieve my goals, never giving up!

肌萎小勇士　輪椅無阻我世界

Muscular Dystrophy warriorwheelchair doesn’t stop my world

患上病發率五千分之一的罕見病，肌肉會逐漸萎縮 壞死，平均只能活到18歲...但這些都不能令梓鍵放 棄，他更把握時間追逐夢想：一手一腳拍攝剪片做

YouTuber「蝸牛仔梓鍵」、做地鐵小車長、越過沙漠、 飛天下海，活得比不少人充實。

Despite being affected by a rare disease that occurs in just one out of every five thousand individuals, causing gradual muscle atrophy and degeneration with an average life expectancy of only 18 years, Tsz-Kin remains undeterred. He embraces every moment to pursue his dreams: as the YouTuber ‘Snail Tszkin,’ he passionately films and edits videos, Being a MTR conductor, explores deserts, and soars over the seas. His life is filled with fulfillment, surpassing that of many others.

陳梓鍵 (15歲)

Chen Tsz-Kin (Age 15)

杜興氏肌肉營養不良症

Duchenne Muscular Dystrophy (DMD)

容易脫骹的「小丸子」：我想做開心人！

Girl with Developmental Dysplasia: I want to be a happy person!

四歲，經歷三次手術。

脫骹、手術，脫骹、手術…卻又重返原點。　 全因她得了無法根治的「發展性髖關節發育不良」。 這小天使卻總笑著說：

白晞佑 (9歲)

Bux Hei-Yau Annie (Age 9)

At the tender age of four, Annie endured three surgeries, experiencing a cycle of dislocation and subsequent operations, only to find herself back at the starting point. This relentless cycle was triggered by her diagnosis of an untreatable condition known as “developmental dysplasia of the hip.” However, this resilient little angel continues to maintain a cheerful demeanor, proclaiming defiantly,

I will overcome this!

Boy suffers from deformed skeleton and damaged organs: I won’t give up

15歲的年紀，10歲的個子。

嘗過生死一線、管他「大部份得20歲命…」之說。

他總是昂首鏗鏘說出：「我叫朱逸朗， 我患上黏多醣貯

積症，第六型。」

我係無畏無懼嘅！

I am fearless and undaunted!

At the age of 15, with the height of a 10-year-old. Having experienced close encounters with life and death, disregarding the notion of “most have a life expectancy of 20...” He always proudly declares, “My name is Chu Yat- Long, and I suffer from Mucopolysaccharidosis, Type 6.”

姚心悅 (18歲)

Yiu Sum-Yuet (Age 18)

脊髓肌肉萎縮症第一型

Spinal Muscular Atrophy (SMA)

Type 1

3613 個案編號 Cause No.

朱逸朗 (15歲)

Chu Yat-Long (Age 15)

黏多醣貯積症第六型

Mucopolysaccharidoses (MPS) Type 6

3606 個案編號 Cause No.

脊髓肌肉萎縮女孩 越過生死線 盼做女作家

SMA girl crosses the line between life and death, aspires to become a writer

長卧輪椅、無法進食，不斷退化…..被判僅八年壽命，她 卻跨進第十八個年頭。

死亡？「好遙遠，我仲有大把青春！」自信與安心，來自24 小時照顧的媽媽。

兩母女生生死死一齊， 幾幸福呀！

Living and facing life and death together as mother and daughter, we are fortunate!

Despite being confined to a wheelchair, unable to eat, and facing incessant degeneration... with a prognosis of only eight years to live, Sum-Yuet has now entered her eighteenth year. Death? “It’s a distant concept. I still have plenty of youth!” Her confidence and tranquility come from her mother’s devoted 24-hour care.

母子同病變 無懼連環醫療失誤 勇抗不治症

Mother and son defy genetic mutation, overcome medical challenges in fight against incurable illness

Roll機，準備，

Camera rolling, ready,

ACTION !!

20歲，有着長不大的「童顏」；全因尚未發育，已先退化。

連番誤診，雙重罕見病，帶來無盡的手術與折磨。

全港第四宗，原來兩母子同患不治症，卻能每天上演樂天內心小劇場。

若人生是一齣劇本，黃偉龍編導演的喜劇，就是鼓勵着身邊人苦中作 樂的藍本。

At the age of 20, Wai-Lung maintains a perpetually youthful appearance, trapped in a state of arrested development due to degeneration.

Amidst numerous misdiagnoses and the burden of two rare diseases, he endures a relentless cycle of surgeries and suffering.

黃偉龍 (20歲)

Wong Wai-Lung (Age 20)

As the fourth recorded case in the entire city, it is revealed that both mother and son share an incurable illness, yet they manage to stage a daily inner performance of unwavering optimism.

If life were a play, the comedy directed by Wai-Lung serves as an uplifting blueprint, encouraging those around them to find solace in laughter amidst life’s hardships.

何俊杰 (11歲)

Ho Jun-Jie JJ (Age 11)

琥珀酸半醛

抽搐無間「植物」男孩 媽媽：不求生命闊度 只求延長壽命

Vegetative boy with constant twitching Mother’s goal: prolonging life

龍鳳胎呱呱落地。

媽媽心願是大手握小手，遊歷世界。

一歲半起，這雙手，日夜也未能歇息。

白天，大手握小嘴，送走嚨中痰。

晚上，大手握小手，陪睡生死邊緣。

我帶佢 嚟 呢個世界......

佢有生存權利......感受呢個世界

I brought him to this world... He has the right to live... to experience this world.

Since the birth of her boy-girl twins, her desire has been to travel the world while holding their hands. However, her hands have been constantly occupied since her son, JJ, who is one and a half years old, requires around-the-clock care. During the day, her hands remove the phlegm from his throat. At night, her hands hold the small hands as he sleeps on the edge of life and death.

ATAD3A

Daughter with incurable disease - degenerating day after day Mom: I am waiting for you to say you love me

家恩 Ka Yan:

仲記得你出世嗰陣好得意、好健康……突然有一日， 所有嘢都變晒，醫生話你有雷特氏症，會一路退化， 連媽媽都唔識嗌……

I remember that you were born fat, so cute, and so healthy... Suddenly one day, everything was changed up-side-down. Doctor said that you have Rett Syndrome and you will degenerate gradually, and eventually you will not know how to call mom...

不過，無論湊住你有幾辛苦、有幾攰，我都 願意做，因為你係我最愛最錫嘅女……

However, no matter how hard and how difficult it is to take care of you, how tired it is, I am willing to continue to do so, because you are my favorite daughter that I love most...

愛你嘅媽媽 Mother loves you

電動輪椅 Electric wheelchairs

$60,000 - 180,000 /部 Unit

呼吸機 Sleep apnea machine

$1,350/月租 Monthly rent

捐款幫助罕見病患者

Donate to help patients with rare diseases

藥物治療 Medication

$160-500萬/年(黏多醣症)

$160萬/年 (脊髓肌肉萎縮症)

$288萬/年 (結節性硬化症)

Over $1.6 million-5 million/ year (For Mucopolysaccharidosis)

Over $1.6 million/ year (Spinal Muscular Atrophy)

Over $2.88 million / year (For Nodular sclerosis)

物理治療 Physical therapy

$7,200/月 Month

史家恩 (29歲)

Sze Ka Yan (Age 29)

雷特氏症

Rett Syndrome

Cause No.

如何

幫

助罕見病患者 How to help patients with rare diseases?

很多罕見病未有藥物可根治，患者只能透 過長期的醫療及復康治療「治標」，減慢惡 化，所以每月面對龐大的醫療開支。

Many rare diseases have no cure, which require long-term medical and rehabilitation treatments to delay the deterioration.

吊奶機 Enteral Feeding Pump

$28,000/部 unit

*收費只供參考，實際收費因個案而異。

*The above medical and rehabilitation treatment charges are for reference only. The actual charges vary from case to case.

趙 強 K.K.Chiu 啟

音樂總監及指揮

Music Director and Conductor

趙啟強超卓的才華使他在國際上嬴得了不少

讚賞，他的才智及與聽眾溝通的能力更深受 香港樂迷的愛戴。畢業於香港演藝學院後，他

與 Hong Kong Mozart Orchestra 香港莫

扎特樂團於1988年作首次公開演出。他的才 華很快獲大眾的認同。

1989年獲委任為香港醫學會管弦樂團 的音樂總監。1999年以來為香港愛樂團 SAR Philharmonic Orchestra 音樂總監。

數年來，他為香港和國內的慈善團體籌款超

過港幣六千萬元。同時他亦曾參與韓國、英國、法國、葡萄牙、澳洲及中國的管弦樂團演 出。自1993年至2005年，他任教於香港教育學院。現致力於音樂教育及指揮工作。

K.K. Chiu’s extraordinary talent has earned him international praise and his wit and ability to connect with the audiences has endeared him to the people of Hong Kong. A graduate of the Hong Kong Academy of Performing Arts, Chiu made his debut with the Hong Kong Mozart Orchestra in 1988. His talents were soon recognized and he was appointed Music Director of the Hong Kong Medical Association Orchestra in 1989 and as guest conductor of other orchestras.

In 1999, he was appointed Music Director and Conductor of The SAR Philharmonic Orchestra. Over the years, he has helped to raise over HK$60 million for Hong Kong and Mainland charities. Chiu has also appeared with orchestras in Korea, England, France, Portugal, Australia and China. From 1993 to 2005, he has been a full-time lecturer at the Hong Kong Institute of Education. Since 2005, Chiu has concentrated his efforts in music education and conducting.

楊柳依 Lauyee Yeung

豎琴演奏家 Harp

豎琴演奏家楊柳依，以優異成績考獲英國皇

家音樂學院及英國倫敦大學雙碩士學位，先 後在世界各地作公開演出，並獲讚譽為一位 「極富音樂感」的豎琴演奏家。

楊柳依六歲開始接受正統音樂訓練，並於翌 年起定期舉行獨奏會，年僅十歲即獲北京中

央音樂學院附屬學校取錄，期間每年均以傑 出成績贏得獎學金；畢業後旋即前赴英國皇 家音樂學院修讀音樂學士及碩士學位。此外， 楊柳依也是英國皇家音樂學院豎琴合奏團的 活躍份子，曾為告羅士打公爵夫人作生日獻

奏及於倫敦皇家歌劇院為查理斯皇子六十大壽作皇室御前豎琴演奏。

自2010年起，楊柳依加盟香港豎琴堡擔任高級豎琴導師，於2018 年開始擔任音樂副總 監。並同時積極在香港及其他亞洲主要城市公開表演。最近她更榮獲聯合國難民署邀 請，與荷李活電影《慾望都市》的著名影星暨聯合國難民署親善大使Kristin Davis一起 出席活動，並演奏豎琴，以支持該署竭力保障難民福祉的使命。

Lauyee graduated from Royal Academy of Music with distinction for her Master of Arts double degrees at the Royal Academy of Music in London and the University of London.

She has recently been appointed Associate of Royal Academy of Music (ARAM), the title is awarded to musicians who have made significant contributions in their musical fields.

Lauyee has taken up the position of Associate Music Director at the Hong Kong Harp Chamber. As an active solo performer, Lauyee has given many public recitals around world. She has had the honor to appear and perform in an UNHCR event recently with renowned Hollywood movie star Ms. Kristin Davis, known internationally for her role in the movie “Sex and the City”, to support UNHCR’s work in safeguarding the well-being of refugees.

艾爾加 -《晨之歌》作品 15 No.2 及《夜之歌》作 品15 No.1

艾爾加被認為是英國近代最偉大的作曲家，他的音樂 喚起了英國鄉村的感覺。

然而，有趣的是他的音樂主 要受歐洲大陸的影響，而不是英國。事實上，他藐視民 間音樂和英國作曲家，並認為亨利·普賽爾是最偉大。 他稱自己所懂得的，都是透過研究休伯特·帕里的作 品學來。

艾爾加受歐洲作曲家亨德爾、德沃夏克、華格納和布 拉姆斯影響；他的管弦樂編曲則受益於法國作曲家柏 遼茲、聖桑、馬斯內和德利伯的澄澈。他最偉大的作品 包括《謎語變奏曲》、《威風凜凜進行曲》、兩部交響曲、 一首小提琴協奏曲和一部大提琴協奏曲以及合唱作品 《傑隆提斯之夢》。

今天，我們音樂會上的兩首作品《晨之歌》、《夜之歌》 原本都是小提琴和鋼琴作品。它們撰於1889/90年 間，但直至1899年才出版。兩年後，艾爾加推出管弦 樂改編版本，使用了精簡的弦樂器、一支長笛、一支雙 簧管、兩支單簧管、一支巴松管、兩支法國號和豎琴。

這兩首作品於1901年9月14日在倫敦女王大廳長廊 音樂會上首次一起演奏，由亨利·伍德指揮。有些評論 家比較喜歡《夜之歌》，指它是兩部作品中，比較深刻 的一部。然而，《晨之歌》的清新旋律，令它更受歡迎。

我們邀請您坐下來、閉上雙眼，想像一個美麗、綠色的 英國夏日早晨。翠綠的樹林中傳來鳥鳴聲，茂盛的草 叢中昆蟲嗡嗡作響。小提琴奏出極具魅力和純真的旋 律，喚起童年夏日的簡單時光。然後，經過一整天的陽 光，黃昏來臨。蝙蝠從一棵樹飛到另一棵樹，捕捉在暮 色下出現的昆蟲。 遠處傳來貓頭鷹的叫聲，鄉村一片 寧靜。

Edward Elgar - Chanson de Matin Op.15, No.2 and Chanson de Nuit Op.15, No.1

Elgar is often regarded as the quintessential English composer, with his music evoking the feel of the English countryside. However, it is interesting to note that his main musical influences were from continental Europe. Indeed, he was contemptuous of folk music, and of English composers, he regarded Henry Purcell as the greatest, and claimed he learned all he knew from studying Hubert Parry’s writings. European influences came from Handel, Dvorak, Wagner and Brahms, while his orchestration benefits from the clarity of the French composers Berlioz, Saint-Saëns, Massenet and Delibes. Among his greatest compositions are the Enigma Variations, the Pomp and Circumstance Marches, two symphonies, a violin and a cello concerto and the choral work The Dream of Gerontius.

The two works in our concert today started life as pieces for violin and piano. They were written in around 1889/90 but not published until 1899. Two years later, Elgar published his orchestral transcription, using pared back instrumentation of strings, one flute, one oboe, two clarinets, one bassoon, two horns and harp. The two pieces were first performed together at a Queen’s Hall Promenade concert in London, conducted by Henry Wood on 14th September, 1901. Some critics prefer the Chanson de Nuit as the more profound of the two works. However, the fresh melodic appeal of the Chanson de Matin has made it the more popular of the pair, Chanson de Matin translates from the French as “Morning Song”, Chanson de Nuit as “Evening Song”. We invite you to sit back, close your eyes and imagine a beautiful, green English summer’s morning, with the sound of birdsong in the verdant green trees and the insects humming in the lush grass. The violins playing a melody of great charm and innocence, evoking the simple days of a childhood summer. Then, after a long day of sunshine, the evening drawing in. Dusk appears, and bats flit from tree to tree, catching the many insects that come out in the twilight. Owls hoot in the distance, and the countryside is at peace.

聖桑(1835-1921)

節目介紹 Programme Notes

G大調音樂會小品，為豎琴與管弦樂團 而作，作品154

聖桑創作了幾首樂器獨奏和管弦樂伴奏作 品，標題為“Morceau de Concert”（直 譯為音樂會小品或協奏曲），相當於小協奏 曲。 這作品是在第一次世界大戰期間創作， 採用了四樂章小協奏曲的形式：

I.

II.

III.

IV.

Allegro non troppo – Allegro moderato – Attacca

Andante sostenuto

Molto Allegro quasi presto – Attacca Allegro non troppo – Animato – Molto Allegro

這首曲子以優美的豎琴華彩樂段開始，設 定了由不同變奏構成的主題。以不同的樂器 組合和變奏為特色，取代複雜的和聲。開場 主題在最後樂章中重複出現，以作為結尾。

Camille Saint-Saëns (1835-1921)

Morceau de concert for Harp and Orchestra, op. 154

Saint-Saëns wrote several pieces for solo instrument and orchestral accompaniment that bear the title Morceau de concert –literally translated as concertpiece – and which act as small-scale concertos. This piece was composed during World War I and followed a form of a small-scale fourmovement concerto:

I.

II.

III.

IV.

Allegro non troppo – Allegro moderato – Attacca

Andante sostenuto

Molto Allegro quasi presto – Attacca Allegro non troppo – Animato – Molto Allegro

The piece begins with a beautiful harp cadenza, setting the theme, which is built up by different variations. Instead of complicated harmonies, it features different combinations of instruments and variations. The opening theme is reprised in the final movement as a conclusion.

孟德爾遜 (1809 – 1847)

節目介紹

A小調第三交響曲，作品56，《蘇格蘭》

德國作曲家孟德爾遜最著名的作品包括《仲夏夜之 夢》的序曲與配樂、《意大利》交響曲、清唱劇《聖保

羅》與《以利亞》、《赫布里底群島》序曲、E小調小提 琴協奏曲、弦樂八重奏、著名聖誕頌歌《聽啊！天使高 聲唱》和今晚演奏的作品「蘇格蘭」交響曲。

孟德爾遜1829年到訪愛丁堡荷里路德宮期間，開始 創作這首《蘇格蘭》交響曲，並寫下了開頭的主題。

他在寫給家人的信中提到：

「今天我們在暮色深沉的時候，去到瑪麗女王（蘇格 蘭瑪麗女王）生活和熱愛的宮殿……下方的教堂已 經沒有了屋頂，那裏和瑪麗被加冕為蘇格蘭女王的 破碎祭壇上，長滿了青草和常春藤。一切都破敗了、 腐爛了，清澈的天空傾瀉而下。隨信附上一張紙片， 上面寫了這首交響曲開頭小節的草稿。」

在這趟旅程，孟德爾遜還去到蘇格蘭西海岸，那裏激 發他創作《赫布里底群島》序曲的靈感。這首序曲的 第一個版本完成後，孟德爾遜繼續埋首他的交響曲， 但進度緩慢。1831年後，他一度放下交響曲。草稿顯 示，孟德爾遜在1830年代末，重新執筆創作第一樂 章，最終於1842年1月20日，在柏林完成了《蘇格蘭》 交響曲。翌年3月3日在萊比錫布商大廈首演。

經過一些演出後，孟德爾遜刪走了大約111個小 節，也是今天演出的版本。雖然這是孟德爾遜完成 的第五首也是最後一首交響曲，但它是第三首出版 的交響曲，故被稱為「第三交響曲」。

這首交響曲由四個相互關聯的樂章組成，孟德爾 遜不尋常地標記為不間斷地演奏。樂曲以A小調的 行板開局，之後擴展為稍微激動的快板。第二樂章 「Vivace non troppo」採用蘇格蘭民謠的節奏和風 格，使用五聲音階的音符和典型的蘇格蘭快節奏。第 三樂章為慢板，保持了愛情與命運之間的明顯鬥爭。

第四樂章為極快和莊嚴的快板，以類似民俗舞蹈的 旋律延續蘇格蘭主題。

Felix Mendelssohn (1809 – 1847) Bartholdy - Symphony No. 3 in A minor, Op. 56, “Scottish”

German composer Mendelssohn’s best known works include the overture and incidental music for “A Midsummer’s Night Dream”, the “Italian” symphony, the oratorios “St. Paul” and “Elijah”,

the “Hebrides” overture, the violin concerto in E minor, the string octet, the melody for the famous Christmas carol “Hark! The Herald Angels Sing” and the work being performed this evening, the “Scottish” symphony.

Mendelssohn started writing the “Scottish” symphony during a trip to Holyrood Palace, Edinburgh in 1829, when he noted down the theme of the opening. He wrote the following in a letter to family: In the deep twilight we went today to the palace where Queen Mary (Mary, Queen of Scots) lived and loved...... The chapel below is now roofless. Grass and ivy thrive there and at the broken altar where Mary was crowned Queen of Scotland. Everything is ruined, decayed, and the clear heavens pour in. I think I have found there the beginning of my “Scottish” symphony. Enclosed with this letter was a scrap of paper containing the sketches of the opening bars of this symphony.

During the same trip, Mendelssohn visited the western coast of Scotland, which inspired him to write his “Hebrides” overture. After completing the first version of this overture, Mendelssohn continued to work on his symphony, but struggled to make progress. After 1831, he put the work aside for the time being. However, by the late 1830s, sketches show that Mendelssohn had returned to writing the first movement, and he finally completed the symphony in Berlin on 20th January, 1842. It was premiered in the Leipzig Gewandhaus on 3rd March, 1842. After some early performances, Mendelssohn revised the work, excising some 111 bars in total, and it is this version of the work that is performed today. Although this was the fifth and final symphony of Mendelssohn to be completed, it was the third to be published and is known as Symphony No.3.

The symphony is written in four interconnected movements, which Mendelssohn has unusually marked to be played without breaks. The opening movement begins Andante con moto in A minor, expanding into the Allegro un poco agitato. The second movement, Vivace non troppo, is in the rhythm and style of a Scottish folk song, using notes of the pentatonic scale and the typical Scottish snap rhythm. The third movement, Adagio, maintains the apparent struggle between love and fate. The final movement, Allegro vivacissimo – Allegro maestoso assai, continues with the Scottish theme with a folk dance-like melody.

為帶出環保再生的意念，簡約主義婚紗品牌「& Philosophy」合 夥人KaLi 和 Windy，將「好自然環保有限公司」贊助的回收衣物， 重生再造，成為《弦愛‧綠韻》罕見病患者的衣飾；更與罕見病患者 家庭、義工合作，為演奏會製作飾物。

In order to convey the concept of environmental protection and regeneration, KaLi and Windy, partners in the minimalist wedding dress brand “& Philosophy”, regenerated the recycled clothes sponsored by “Good Natural Environment Co. Ltd.”, giving them a new life as clothing for patients with rare diseases. Families of rare disease patients and volunteers also participated in making ornaments.

表演嘉賓 Performer

馬冠平先生 Reliant Ma

「& Philosophy」主要提供時尚獨特的輕婚紗， 以及為客人量身訂製服務。婚紗的生產過程均經 二人之手並於香港完成。

KaLi & Windy are co-founders of the minimalist wedding dress brand“& Philosophy”, which mainly provides stylish and unique light wedding dresses, as well as tailor-made services for guests. The wedding dress production process is completed by KaLi & Windy in Hong Kong.

「好自然環保有限公司」透過與多個屋苑、法團、 慈善團體合作舊衣回收，鼓勵市民善用資源、循 環再用，將廢物變成有用資源，回饋社會。

“Good Natural Environment Co. Ltd.” cooperates with housing estates, corporations, and charitable organizations to recycle used clothes, encouraging the city to make good use of resources, turn waste into useful resources, and give back to the society.

流沙繪影 Sand Painting

時間如流沙，轉瞬即逝；罕病童的生命故事，提醒我們珍惜當下。

沙畫師馬冠平先生率領罕病童，以沙和光影流動，訴說他們的故事。

Time flies like dry sand slips through your hands. The life stories of children with rare diseases remind us to cherish the moment. Sand painter, Mr. Reliant Ma, leads children with rare diseases to tell their stories using the flow of sand and shadow.

馬冠平先生於社福界服務逾廿載，活躍於籌辦藝術工作，藉著音樂和沙畫等創作，帶都市人放下煩囂與壓力。

Mr. Reliant Ma has served in the social welfare sector for more than 20 years and is active in organizing artwork. Through music and sand paintings, he helps urbanites let go of their hustle and pressure.

婚宴、BB百日宴、生日Party/壽宴，每件人生大事，都可以變成愛的盛事！

Lifewire 回禮捐款套餐有多個計劃選擇，提 供如電子賀卡、回禮小卡、婚宴簽名布、愛 心捐款證書、Lifewire 季刊及電子邀請短片 等等。令喜慶日子多一重意義，也讓罕病童 感受到你們的愛和喜悅，給予他們延續生命 的機會。請到我們網頁了解更多。

歡迎查詢 Lifewire 回禮計劃 熱線：3758 8701 Whatsapp：6290 9985

&PHILOSOPHY

We make wedding dress for you.

郁愛社群超自我， 靄護老幼群沐恩。

Estate of Ng Yuk Oi

With Compliments

恒利建築公 司

H E N R YV IC Y CONSTRUCTION CO., LTD .

ESG poster 133Hx190W copy.pdf 1 3/5/2024 10:48 AM

可持續發展嘉許計劃

Environmental, Social & Governance Recognition Scheme

香港建造商會創建於1920年，先後推出多項前瞻性計劃，致力推 動行業進步的同時，並與社會攜手邁向碳中和目標。商會於2022 年撥資 港幣 $1,000 萬推出「可持續發展嘉許計 劃 」，協助行業 建立ESG資料庫，資助工地應用創新科技，並提供獎賞活動讓建 造業從業員建立ESG工作模式。計劃開展一年後，已有超過100 個工地加入計劃，參與的從業員人次超過20萬。

The Hong Kong Construction Association (HKCA) established in 1920, has pioneered multiple progressive initiatives advancement to drive our industry and society towards sustainable development. In 2022, HKCA set up the HK$10 million to launch the “Environmental, Social, and Governance (ESG) Recognition Scheme”, establishing an extensive ESG database, providing nancial support for the implementation of innovative technologies, and o ering rewarding activities to encourage industry practitioners to adopt ESG practices. Within a year of its inception, the scheme attracted a remarkable 100 participating construction sites, with an impressive 200,000 number of industry participants actively engaged!.

商會撥出HK$1,000萬，資助會員公司 推薦工地參與計劃，推動可持續發展與 智慧工地

HKCA allocated HK$10 million to support members’ construction site to join the scheme to promote sustainable development and smart site.

Blockchain Platform

為協助承建商管理ESG資訊，商會與 業內專業人士選出合適的重要指標， 並納入平台

To assist contractors to handle ESG information, we engaged industry professionals to incorporate ESG indicators of major standards into the platform.

參與計劃並使用「可持續發展嘉許計劃 平台」，會員公司便能立即獲得：

Join the scheme and adopt the “ESG Recognition Scheme Platform” to receive:

2. 創新科技資助 Innovation & Technology Subsidy

每個人都能參與推動可持續發展！為 鼓勵建造業上下一起參與ESG活動， 商會「ESG職Fun奬」App����送出超過 HK$100萬 奬品！

www.hkca-esg.com

參與計劃的會員公司可申請創新科技資 助，以添置CSF產品或ESG相關的科技 設備，最多可獲得：

Everyone can contribute! To motivate individuals to take action on ESG, we o er the rewards worth over HK$1 million one the “ESG Build Fun App”!

參加活動賺取

換禮物 Joining promotion events to earn ESG Coin to redeem prize

1. 參與奬勵 Joining Incentive HK$10,000 HK$100,000

Members can apply for the innovation & technology subsidy to purchase CSF products or ESG related technology items. The max. amount for each member is:

ESG Coin 記錄行業每一個ESG行動，大 家合力儲起的金幣將有無限可能，助行 業及社會逐步邁向碳中和及可持續發展 ESG Coin records every ESG action taken by us, which has great potential to contribute to carbon neutrality and sustainable development in the future.

With Compliments of

因為愛心 同事更齊心

Lifewire CSR 企業社會責任

Lifewire成立至今，已有多間企業參加我們的CSR企業社會責任計劃，從而貢獻社會， 為公司股東、員工、社區及受惠者帶來別具意義的社會利益。

歡迎查詢 3758 8701 info@lifewire.hk

對企業

提升員工凝聚力及領導力 擴展公司網絡、增加社會認受性

對社會

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• • • 為罕見病患者籌募醫療經費 親身接觸罕病童，每個活動都令他們生活變精彩 令罕見病獲得更多關注

探訪病患家庭或參加活動，聯手護愛。

CSR Step by Step

挑選合適的CSR計劃 / 自訂義工活動 1 與同事啟動籌款活動 / 捐款 / 做義工 2

3

由Lifewire 推薦申請「商界展關懷」商標， 公司商標亦將展示於Lifewire相關宣傳*

*視乎參予之CSR計劃而定

FIRST VIOLINS

Aniela Emma Chaudhuri, Concertmaster

Tim Mak

Gary Lee

Salina Chen

Henryk So

Joanne Tam

Gabriel Cheung

Cordelia Yu

So Cheuk Hang

Stephanie Wong

Wai Leong Lau Eddie

Rosanne Lau

Eva Nowak- SolinskaE

Andrew Nowak- Solinski

List of SAR Philharmonic Members

SECOND VIOLINS

Joyce Chan

David Ho

Davis Yiu

Yanis Yip

Kate Moran

Rinko Hazawa

Chan Oo

Samantha Luke

Katherine Leung

Jonathan Hui

Anthony Fung

Richard Wallace

Kelvin Yeung

Nanice Lam

Alex Cheng

VIOLAS

Eugene Au

Marcus Yan

Xu Yang

Samantha Gershon

Benedickt Fohr

Ivan Kung

Frank Chow

Jessie Chan

Terrence Yim

Crystal Kwan

Maya Adelt

James Kim

CELLOS

Alex Ling

Bart Chan

Cristy Almeida

Atsushi Yamamoto

Nick Kwok

Ive Chan

Pao Yen

Carmen Koo

Stephen Chan

Buddy Wong

Tiffany Chan

John Chan

DOUBLE BASSES

Rio Li

Michael Bradley

Hylas Chung

Adrian Davis

Li Ki Si

Moses Chau

FLUTES

Jay Liu

Maggie Holmes

OBOES

Janice Ho

Niki Cheuk Lam Tse

CLARINETS

Susan Edwards

Theresa Lam Pui Yee

BASSOONS

Aphichat Dechasophon

Richar Lixia Zhang

HORNS

Fred Cheng

Edith Tam

Jerome Yau

Elsa Yeung

TRUMPETS

Ethan Sze

Chapman Li

TIMPANI

Kenneth Heung

HARP

Kelly Enqi Tian

參與Lifewire《護‧聯網》義工服務，

讓罕見病病童感到愛與關懷，實踐救救孩子的使命

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