Exfam 18

2018 Exceptional Family KY

1

WINTER/ SPRING

INDEPENDENCE

INTEGRATION

2018

INCLUSION

12

In Good Shape Health Partners Program Helps People Follow A Healthy Lifestyle

6

18

These Are Folks Just Like You

From Autism to Tourette’s Syndrome, Statewide List Provides The Information You Need

Meet the CCDD

10

8

Legislator with a Heart Sen. Danny Carroll Advocates in Frankfort For People With Disabilities Like His Daughter

4

Make Your Voice Heard in Frankfort

19

It’s time for the Legislative Session. And who can be a better advocate for you than YOU?

Driver permit program is a big success; Expert speakers to highlight annual meeting.

16

With a Song in His Heart

Letter from CCDD Change doesn’t happen by accident, Executive Director Kellie McCain writes.

Music and self-advocacy are at the center of the life of Joe Cowan, a CCDD member.

5

Reader Survey Provide feedback about Exceptional Family Magazine for a chance to win $250.

Editor..........................John Lynch of Lexington Family Magazine

Graphic Artist...............Matthew Hall

of Lexington Family Magazine 2

www.lexingtonfamily.com

Resource List

14

The Arc

Need More Copies?

For Additional Free Copies, Call: (859) 223-1765 or email: john@lexingtonfamily.com Hablas Espanol? For the Spanish Version of the Magazine, visit lexingtonfamily.com

UPS Delivers on Diversity

Training program puts people like Bryce Clayton to work

2018 “Exceptional Family Ky” is published by Lexington Family Magazine, Central Kentucky’s premier parenting publication.

138 E. Reynolds Rd. # 201 • Lexington, Kentucky 40517 (859) 223-1765 • www.lexingtonfamily.com • info@lexingtonfamily.com

We Need Your Help If you want to affect policy, influence legislators and advocate for change,

the CCDD Council is the place for you.

The Commonwealth Council on Developmental Disabilities is a dynamic mix of people with unique backgrounds and experiences.

Members include 16 governor-appointed individuals with disabilities and family members of individuals with disabilities, as well as representatives from major state agencies that serve people with developmental disabilities.

Get Involved Today Join the CCDD

Info: (877) 367-5332 or visit www.kyccdd.com.

Commonwealth Council on Developmental Disabilities

Advocacy Works

Letter from the C C DD

Kellie McutCivae in CCDD Exec Director

I

n many ways, I have prepared my whole life for working with the Commonwealth Council on Developmental Disabilities.

Years ago when I was in college, I spent a summer in Cincinnati working at a camp for people with disabilities.

I fell in love with those campers and have been passionate about that population ever since.

I earned my bachelor’s degree in art therapy with an emphasis on special education.

After college, I worked as a home manager at the Association for the Developmentally Disabled in Ohio.

In Nashville, I served for 18 years in the state Commissioner’s Office in the Department of Intellectual and Developmental Disabilities.

I also served on the Mayor’s Advisory Committee for People with Disabilities and previously was a member of the city’s Access Ride policy committee.

In 2014 I earned my master’s degree 4

www.lexingtonfamily.com

from the Nelson and Sue Andrews Institute for Civic Leadership at David Lipscomb University in Nashville.

Everything about my degree fits the CCDD’s mission of creating change in the community. Everything I learned has to do with collaboration and being a servant leader. The CCDD is about the members and staff. It’s certainly not about me.

I

believe strongly that leadership is crucial in creating community change. Leaders become influencers in their communities and that creates more acceptance and inclusion for people with disabilities.

As leaders, they can advocate for themselves on a different level.

Leaders are not born, they are created. We want to identify what kind of leaders we have on the Council, help them find their leadership style and expose them to more opportunities.

Change doesn’t just happen, we must be intentional about it. We need to have a vision and set goals for the community we want to have.

The good news is that we have such a strong Council and an organization that works so well.

In this group, I see community members who are proactive about creating change. They meet with legislators and create programs.

They are like-minded people who are passionate about advocacy and share the same goals.

It’s wonderful to see decisions made by people who are living this.

Because of that we have an incredible opportunity to make a difference in all of our communities. n

to HowCCDD

become a

member

Members include people with developmental disabilities as well as family members and guardians of people with developmental disabilities.

Council members are expected to attend quarterly meetings that last two to three days, and other events throughout the year.

A member serves a threeyear term and is limited to two terms of service.

Info: www.kyccdd.com or

1-877-367-5332.

Be among the first 50 to enter a drawing for $250 Take This Survey online at: www.lexingtonfamily.com/exceptional-family-reader-survey

Name: (street) Address: Phone Number: ( ) Are You A:

(city)

(state)

(zip)

-

Person with a developmental disability

Family member of a person with a developmental disability

Other:__________________________________________

What do you most enjoy about this magazine?

What improvements would you suggest and are there resources we need to add?

How satisfied are you with this magazine?

Not Very Satisfied ( )

Somewhat Satisfied ( )

Satisfied ( )

Very Satisfied ( )

Please list any story ideas you would like to see in a future edition:

To enter contest, mail the completed survey to: 138 E Reynolds Rd Ste 201 Lexington, KY 40517

859-223-1765

info@lexingtonfamily.com www.LexingtonFamily.com

2018 2018 Exceptional Exceptional Family Family KY KY

5 5

Meet the CCDD...

Advocacy Works

Council members (L to R): Back Row: Joseph Miller, Erin Tiemeier, Laura Lyle, Kellie McCain, David Merdian, Margaret Sauser, Roxanne Holbrook, Robin Linton, Karen Brammell, Claudia Johnson, Camille Collins.

Front Row: Joe Cowan, Sherry Sanders, Elaine Eisenbaum, Colleen Payne, Lela Hale, Carrie Fowler, David DeSanctis, Laureen Vassil, Sherry Pickett, Grant Gupton.

Not Pictured: Janice Bright, Becky Cabe, Jennifer Dudinskie, Lori Gresham, Stephanie Turner The mission of the Commonwealth Council on Developmental Disabilities is to create systemic change in Kentucky that empowers individuals to achieve full citizenship and inclusion in the community through education, capacity building and advocacy.

Come Join Us!

If you want to affect policy, influence legislators and advocate for change, the CCDD Council is the place for you.

Call today to learn how you can make a difference.

(877) 367-5332

6

www.lexingtonfamily.com

www.kyccdd.com

~ New Member Profiles ~

Karen Brammell Grayson, Ky.

Grant Gupton Simpsonville, Ky.

“As the parent of a child with an intellectual disability, I jumped at the chance to serve on the Council. My son, Jack, is 13 and has been in Special Education in some respect since he was 9 months old.

I want to be an advocate and resource for him, as well as other parents regarding the programs and opportunities that are available to children and adults with disabilities. This is a tremendous opportunity that has come to me at the perfect time.”

“I’m a selfadvocate and I get a lot of help from my family.

I like being on the Council because the more I learn, the more I can help others.

I enjoy the Council meetings and I take notes because what we talk about is very interesting.

I am so thankful that Governor Bevin asked me to be part of this. God is so good to me!”

David Merdian Louisville, Ky.

“I am a self-advocate and a junior at Western Kentucky University pursuing a degree in economics with a minor in legal studies.

I have a long interest in having my opinions heard in places where they might end up creating change. Serving on this Council provides me a first-rate opportunity to accomplish this goal.

I also enjoy sharing my thoughts on political issues, ranging from healthcare and economic regulation to more niche issues like the place of religion in society.”

Erin Tiemeier Ft. Thomas, Ky.

“I am a 30-year-old self-advocate and I have had a lot of struggles in my life, but I also had a lot of help.

I want to tell others with disabilities that there are people who have gone through what they have gone through, and those people can help.

Sometimes, people with disabilities aren’t seen as real people or people with intelligence and strength.

That’s not right.”

2018 CCDD Quarterly Meetings

CCDD 2018 Calendar

• Feb. 8-9

Clarion Hotel, 1950 Newtown Pike, Lexington

• May 10-11

CCDD Office: 656 Chamberlin Ave, Suite C, Frankfort

• Aug. 9-10

CCDD Office: 656 Chamberlin Ave, Suite C, Frankfort

• Nov. 15-16

CCDD Office: 656 Chamberlin Ave, Suite C, Frankfort

Other 2018 Dates • March

Developmental Disabilities Awareness Month

• March 14

CCDD Day at the Capitol

• March 8-9

The Arc of Ky. Annual Conference, Louisville

• April 23-23

National Disability Policy Seminar, Washington, D.C.

• May 24

Old Frankfort State Hospital Cemetery Clean-Up, Frankfort

• June 7-9

National Self Advocacy Conference, Birmingham, Alabama

• June 17-18

National ADA Symposium, Pittsburgh, Pennsylvania

• June 26-28

National APSE Conference, Lake Buena Vista, Florida

• July 9-12 National Association of Councils on Developmental Disabilities Annual Conference, Washington D.C. • October

National Disability Employment Awareness Month 2018 Exceptional Family KY

7

Update

Advocacy Works

New CCDD Office Provides More Space for Meetings

T

he Commonwealth Council on Developmental Disabilities has moved into new, more spacious offices that will allow the CCDD to hold its quarterly Council meetings in Frankfort.

The offices at 656 Chamberlin Ave., Suite C in Frankfort will include a Resource Room for members and staff to conduct research and familiarize themselves with new trends and the latest news in the industry.

The office has been specifically organized for accessibility for members and visitors.

The move follows the proposed demolition of the offices adjacent to the Capital Plaza Hotel, where the CCDD formerly was located.

“We are very excited about this move,” Executive Director Kellie McCain said.

“Council members and staff will experience a space that is open and welcoming to visitors.

“We are thankful for this opportunity to develop a new sense of autonomy in a privately leased space designed specifically for us.” n

Make Your Voice Heard in Frankfort

Talk to Your Legislator It’s time for the Legislative Session. And who can be a better advocate for you than YOU? Even if you don’t have a specific bill to discuss, it’s important to let your senators and representatives know who you are and that you are a voter in their district.

It’s easy to set up an appointment. Start by visiting the Legislative Research Commission’s website (www.lrc.ky.gov) to see who your legislators are.

Then, call (502) 564-8100 and ask to speak to that legislator’s office.

When connected, ask to set up an appointment.

You will be asked to provide your name and what issues you’d like to discuss. And some legislators may even have you e-mail the requests to them. It’s easy to do, so get started!

Supported Decision-Making Story Receives National Attention

A

n article in the last issue of Exceptional Family Magazine about Supported Decision-Making that chronicled a Lexington women’s successful quest to be freed from guardianship has received national attention.

The story about Suzie Heck, 22, was picked up the National Resource Center for Supported Decision-Making web site.

Heck is the first person on record in Kentucky to have her rights fully restored by the courts with Supported Decision-Making as an alternative to guardianship.

Camille Collins of Kentucky Protection & Advocacy, who worked closely with Heck throughout the process, received calls from other states inquiring about Kentucky’s process.

Also, at the time of the story, Heck was waiting to be placed with a family through the Family Home Provider – and she has found one.

One of her supporters, Lynn Hall, applied to be a Family Home Provider and has taken Heck into her home.

To see a copy of the story, visit www. lexingtonfamily.com/resources/exceptionalfamily/. Or you can request a copy of the magazine by calling (859) 223-1765. n

Coming Soon The CCDD is creating a 12-14 minute video that will walk viewers step by step through the process of how to meet and talk with a legislator.

The video can be accessed through the CCDD’s web site and YouTube page sometime later in 2018. n

Suzie Heck with Lynn Hall, her Family Home Provider

Reader Survey Winner Announced

T

he winner of the $250 cash prize of Exceptional Family Magazine’s latest Reader Survey is Jena Wells, a mother of four children aged 5 to 11, including 7-year-old Ashton, who has Down syndrome.

Jena works at the Down Syndrome Association of Greater Cincinnati that serves Northern Kentucky. As the Early Matters Coordinator for the Association, Jena supports families that have a new baby with Down 8

www.lexingtonfamily.com

syndrome and works with that family until the child is 5 years old.

Jena plans to donate the $250 prize to the Association. In her survey, Jena praised Exceptional Family Magazine for its hopeful stories and the list of resources.

“The resources are great and we have given the magazine to many of our families,” she said. n

We can do this, together.

If you qualify for Medicaid, come join us at Passport Health Plan.

Call 1-800-578-0603 www.passporthealthplan.com

MARK73995 2018 Exceptional Family KY | APP_8/29/2017 9

Lawmaker Profile

Legislator With a Sen. Danny Carroll Advocates in Frankfort For People With Disabilities Like His Daughter

F

Heart

By John Lynch

ew state legislators have advocated for Kentuckians with disabilities harder than Senator Danny Carroll, a Republican from Paducah.

A retired police officer, the first-term legislator is the father of a child with a disability and is the current President and CEO of Easter Seals West Kentucky.

“Easter Seals and our family are a

Senate Bill 19 would create a higher level of protection for people with intellectual disabilities by increasing the penalty against sexual assault offenders.

Currently, if someone mentally incapacitated and unable to give consent because of alcohol or drug use is sexually assaulted, the crime is second-degree rape.

But if the same crime is committed against a person who is unable to give consent because of an intellectual disability, that is only thirddegree rape.

This bill would make the punishment in the two scenarios equal.

Carroll, who was the assistant police chief in Paducah when he retired, acted after consulting with friends in law enforcement.

“It doesn’t make sense to give a lesser penalty when the victim has an intellectual disability since both conditions (mentally incapacitated and intellectual disability) are involuntary,” he said. “We have to make this fair.”

The second legislation that Carroll has proposed is Senate Joint Resolution 52, which would Carroll and his family (Teressa, Seth now 25 extend the reach of Peer Network programs – where typical students and Maggie, now 18). are paired with students with disabilities – to schools throughout the state. perfect match,” Carroll said. “Working Carroll has seen this program up close there and dealing with children and and personal at McCracken County High adults with special needs for seven years where his 18-year-old daughter, Maggie, has been a blessing.” attends.

In his role as elected official, Carroll Born with cerebral palsy, Maggie has sprung into action as soon as the 2018 overcome most of her mobility issues and General Assembly session opened in is a happy, outgoing high school senior January by filing two bills that would with a mild mental disability. benefit those with disabilities.

10

www.lexingtonfamily.com

“The Peer Tutor program at McCracken High has been very successful,” Carroll said. “We have seen it and it has changed the whole atmosphere of the school and made our school a better place.

“Wouldn’t it be great if all schools had this program?”

That’s what this bill would encourage by directing the state department of education to work with the Human Development Institute at UK, which devised the program, to make training available to any interested school. No school would be mandated to adopt the Peer Tutor program.

“This bill would make it possible for all students to have a full high school experience within their limits,” Carroll said. “And the typically developing students are getting as much out of the program as our students (with disabilities). Many have become interested in the special education field and may pursue it as a career.”

At McCracken High, Maggie is the assistant manager of the school dance team and has performed on stage with the group. She attends ballgames with her friends, and her boyfriend since the sixth grade is one of the school mascots.

“One of our kids was the homecoming king a while back,” Carroll said. “Typically developing students at the high school don’t see our kids as different. They accept them for who they are.”

Chris Gregory, who oversees the Peer Tutor program at McCracken, has worked with Maggie since she was in middle school. He freely admits that

Sen. Danny Carroll with Maggie (left) when she was a legislative page. Bottom right: Danny and Maggie at a Father-Daughter dance.

Maggie knows more about the social life at school than he does.

“She’s an awesome kid, very social, enjoys her friends and having a good time. Typical teenage stuff,” he said. “She wants to learn new things.”

Through the employment program at the school, which is operated by Easter Seals West Kentucky, Maggie has worked alongside a restaurant hostess and job shadowed at Office Depot.

“She likes to be organized so she loves everything about Office Depot,” Gregory said. “That’s her dream job.

That and Disney World.”

“We were devastated at first because we didn’t know what it meant,” Carroll said.

“How long would she live? What would her life be like?

“Once we educated ourselves, we began searching out proper medical care for her, and we continue to do the very best we can for her and advocate for her any way we can.”

Through the Michelle P. Waiver and Community Living Supports, Maggie works with three aides who help her with daily living skills such as shopping, personal hygiene and counting money.

“This is a very successful program and is hugely beneficial for those with disabilities,” Carroll said.

Carroll and his wife keep close tabs on Maggie’s progress at school, making sure she has all that she needs to be successful.

“They are very aware of Maggie’s abilities

and capabilities,” Gregory said, “and they want to make sure she is engaged with her surroundings and is exposed to as much as possible.”

Including state government. Carroll crossed the legislative aisle to partner with Sen. Dennis Parrott – Democrat from Elizabethtown – who also has a daughter with special needs. The two legislators created the Sunny Pages program where people with disabilities serve in the Capitol as a page for a day.

Sunny Pages each receive a certificate and a T-shirt just like other honorary pages. If special arrangements are needed, legislative staff members arrange appropriate accommodations.

“In a minor way, it’s about inclusion and visibility for people with disabilities,” Carroll said.

The first participant in the program? You guessed it.

Maggie Carroll. And she loved every minute of it. n

L

ike other parents, Carroll and his wife Teressa have refused to set limits for their daughter. Maggie loves horses so they arranged therapeutic riding lessons for her at Cassidy’s Cause in Paducah. The lessons also developed her core muscles, which helped her mobility. Plus, she loves being around horses.

“She’s real girly girl,” Carroll said, “but she will shovel horse poop all day long.”

Of course, parenting a child with a disability poses special challenges.

When Carroll and his wife first learned of Maggie’s diagnosis, the news hit them hard.

2018 Exceptional Family KY

11

Health Partners Program

In Good Shape Health Partners Program Helps People Follow A Healthy Lifestyle

By John Lynch

In high school, he wrestled without his prosthetics – one reason he enjoyed the sport above the others he pursued. In Special Olympics, Morgan ike many former high school played basketball, athletes, Morgan Turner, now 23, softball and flag fell out of shape once his prep football. wrestling career ended with graduation.

“It’s annoying to That made Morgan an ideal candidate wear my legs all for the Health Partners program, day, and they get funded by the Commonwealth Council sweaty when I play on Developmental Disabilities and sports,” Morgan administered by the Health and Wellness said. “I was free to ’ do what I wanted Initiative at the University of Kentucky s when I wrestled. I Human Development Institute. also liked hanging out with my friends on the team.”

Health Partners is a holistic health Wearing his Tates Creek High and wellness program that addresses physical, social, emotional and spiritual uniform, Morgan would move to the center of the mat on his hands and well-being through meaningful knees. In that position, his upright activities. opponents loomed over him.

Uniquely, this program focuses “It was like staring up at the Eiffel training on a person with disabilities Tower,” he said. and a partner. In Morgan’s case, it was But when the whistle blew, Morgan he and his mother, Margaret Woodard, shot across the mat and grabbed his who participated in the pilot program opponent by the ankle and the fight in the fall of 2015. was on. By the time he was a senior, Morgan, who lives in Lexington, was he was winning varsity matches in the born with hydrocephalus, abnormal 190-pound weight class. legs and an abnormal left hand. He A few years after high school and uses prosthetics on both legs for Morgan now tips the scales at over 200 mobility.

L

12

www.lexingtonfamily.com

pounds. Time to get in shape. Health Partners was the place for him.

The class was based on a curriculum developed by the Oregon Health and Science University and intended for people with disabilities.

Program directors Megan Jaspersen and Lindsey Mullis of HDI adapted the class to include a partner (family member, friend, paid support, etc.) and stripped the curriculum of disabilityspecific language.

“We wanted to broaden our reach and include networks of support to increase our impact,” Jaspersen said.

“If we do a lesson on nutrition and the person with a disability is not the one going to the grocery store, that’s a problem we wanted to address,” Jaspersen said. “We quickly realized that everyone can benefit from this curriculum.”

A hallmark of the program is the incorporation of Universal Design for Learning (UDL) strategies to make the curriculum more interactive and more accessible for people with a wide range of abilities, interests and learning styles.

HDI added hands-on activities and visuals to create an interactive learning environment.

Officials at Oregon Health and Science University liked the UDL updates so much that a new edition of the curriculum has been published to include them.

the program. Kathy sent Jaspersen a note of thanks for helping her son realize the importance of eating well.

“Tage recently had an appointment with his cardiologist and the echocardiogram showed that the walls of his heart are back to the normal thickness range,” Kathy wrote to Jaspersen.

“I am convinced it is because he is being healthier in his eating habits!”

Working with the Build Above, Morgan Turner, 23, wrestled at Inclusion’s AIM program Tates Creek High. Left, he hung out with (Advocacy + Inclusion on former UK player Tayshaun Prince durng a Mission), HDI took the an event in Connecticut. Below, Morgan program to area schools and his mother Margaret went through the Health Partners Program together. such as Millcreek and Mary Todd elementary schools in ealth Partners was up and Lexington and Danville High to help running by November 2015 students with disabilities. with courses offered at local extension offices, libraries and wo years into the Health community centers in Lexington, Partners program and the Louisville, Richmond, Danville, results are heartening, Somerset, Morehead and Boone Jaspersen said. Surveys reveal that County. participants have improved across the The size of each class ranged from three to seven sets of partners. The class board in all health areas.

After the program, participants met for two hours for six consecutive exercise more, eat healthier, take time weeks with monthly follow-up sessions to relax and deal with stress better. for six months.

“We feel that the results have been These sessions focused on finding encouraging,” Jaspersen said. “These are ways to plug participants into local real changes that people are making in resources such as exercise gyms, yoga their lives. There are so many positives.” and cooking classes, mindfulness Morgan and his mother agreed, so workshops, and visits to a grocery store after they completed the program, and hiking trails.

Woodard called HDI to learn if the Each participant identifies three program needed volunteers. goals, an activity that Morgan eagerly Jaspersen did them one better and embraced. hired Morgan as one of four self“My goal was to cut down on sodas, advocates who work with her teaching and I’m doing better about that,” he the classes. The other self-advocates are said.

20-somethings Monica Hayes, Brandy “I liked seeing what everyone else’s Martin and Megan McCormick, all of goal was and hearing other people talk Lexington. about their progress.”

In November of 2017, a Train the Morgan isn’t the only who has Trainer event was launched across improved. Kathy Cook of Lexington Kentucky in another effort to broaden and her son Tage also completed

H

T

the program’s reach.

Paired with a self-advocate, Jaspersen, a certified master trainer, offered programs to a variety of organizations such as churches, provider organizations, hospitals and advocates.

Jaspersen and a self-advocate walked participants through the curriculum, and provided training tips, resources and materials needed to implement the program.

Morgan, who accepted his first paying job when he was hired by HDI, thrived as Jaspersen’s partner.

“I met a lot of people and I got to talk about the program,” said Morgan, who has been a frequent public speaker with the Special Olympics program.

Said his mother: “This is right up his alley.”

People with the CCDD feel the same way. Launching programs like Health Partners is central to the Council’s mission.

“We are thrilled with the success of Health Partners,” Council member Colleen Payne said. “Not only are people getting healthier in the classes, many are also learning self advocacy and leadership skills to even further expand the impact.

“The Council couldn’t be happier with our investment in this program and in the health of Kentuckians with disabilities and their friends and families.”

For more information about HDI’s health initiative go to www.wellness4ky.org n

2018 Exceptional Family KY

13

UPS Delivers on Diversity

UPS TLC Program

Transitional Learning Center Puts People With Disabilities to Work

Meet Bryce Clayton W

hen doctors first examined Bryce Clayton after he was born 27 years ago with the rare disorder, Kabuki syndrome, they declared that he would never hold down a job.

Boy, were they wrong.

Clayton not only is a reliable worker at UPS in Louisville, he is a multiple winner of the employee-of-the-month award and has moved up from a part-time loader to trainer and now to a supervisor.

Not bad for a man who has undergone multiple open heart surgeries, and was born with a severe hearing impairment and with significant developmental delays.

In school, Clayton studied in a self-contained classroom and earned a general certificate instead of a diploma when he finished

TLC Gets Up and Running

T

he Transitional Learning Center traces its roots to 2012 when Tom Volta, a senior Human Resources executive who has since retired from UPS, visited a Walgreen’s distribution center that emphasized employing individuals with disabilities.

He returned to Louisville and called for a disability summit that focused on these facts: t UPS, the largest employer in the state, constantly seeks part-time employees. t People with disabilities, who 14

www.lexingtonfamily.com

By John Lynch

high school in Louisville.

Clayton then found work at a plumbing company, but he sought a career with the

potential for advancement.

(The same holds true for his education. He is adamant that he will earn a college degree.)

In 2015, when he learned of a new program at UPS called the Transitional Learning Center that trained people with disabilities, Clayton plunged ahead. He now ranks as one of the program’s most compelling success stories.

“For Bryce to become a supervisor represents a huge accomplishment for TLC,” Program Supervisor Kim Ray said. “It’s very gratifying to see students come through the program and be promoted.

“This was Bryce’s dream and this is what he told us from Day One. He wanted a career and he wanted to move up in the company and that’s exactly what has happened.”

Said Clayton: “This program did wonders for me throughout the whole process. They have helped me so much along the way and are always there when I need them. They have been outstanding.” often need parttime work only, represent an untapped labor pool.

This was a match made, if not heaven, then at least in the UPS Worldport

facility.

First, UPS contacted the Bullitt County offices of Options Unlimited, a non-profit agency that connects people with disabilities with employers.

UPS also joined the Coalition for Workforce Diversity, an ever-growing alliance of businesses seeking to diversify their companies.

At first, UPS trained people with disabilities along with all other potential direct hires, a method that needed improvement.

“We were bringing them in with a

pool of 50 other potential employees, and we weren’t reaching them,” Training Manager Todd Coffey said.

“We had to change our whole model of training.”

Which UPS promptly did – founding the Transitional Learning Center.

Every two weeks UPS starts a TLC class with only six clients, who are taught by two UPS trainers plus a teacher from Options Unlimited.

Classes last two weeks but if clients need more time, they receive it.

Options Unlimited also has one employee on the floor to make sure clients are successful and another employee who works the floor and in the classroom.

The agency also helps clients

develop soft skills such as proper hygiene, working with others and how to ask for UPS TLC Program help.

“Clients role play in the classroom so they know how to go on break and how long 10 minutes is,” Ray said. “Most clients have a cell phone and we teach them to tell time.”

The training and support supplied by UPS and Options Unlimited obviously work. The Transitional Learning Center has become a runaway success.

Of the clients who start the program, 86% become UPS employees for a total of more than 170 employees with disabilities – or nearly 10% of the dayside workforce.

Retention rates have spiked and safety issues have plummeted.

The results have not gone unnoticed. The program has won several awards including one from the Ruderman Family Foundation.

The Association of People Supporting Employment First named UPS Employer of the Year as did the Kentucky Vocational Rehabilitation Council.

Within UPS, nearly every top official from the CEO on down has toured the program, and other major employers (Toyota and Tractor Supply) have visited as well.

“It’s a real showcase, a hidden gem,” Coffey said.

Phil Donahue at Options Unlimited has seen the program from both sides.

He worked in Lisa Clayton, Bryce’s mother: “The program is responsible so much for what Bryce human resources is doing. They have worked with him, had total faith in him and opened the door for him.” at UPS when the disability summit was called in 2012 and moved to Options Unlimited as a Program Manager when he retired from UPS in 2015.

“UPS values diversity so this is a great program for the company,” he he Transitional Learning Center “I get phone calls all the time telling said. “And it’s great for our agency has led to Bryce Clayton’s greatest me how well he is doing,” his mother because people with disabilities want professional accomplishments, Lisa Clayton said. to work and now they can because of too. He takes pride in the impact She echoes her son’s sentiments the Transitional Learning Center.” he has on the employees that he about his confidence. Recently, at a The success of the program has supervises. funeral for a friend, Bryce surprised changed the mindset among UPS “I know how to motivate them and her by standing up and making an employees as well, Donahue said. to help them push themselves to do eloquent tribute to his late friend.

“This has gone from ‘Why are we their very best,” he said. “It’s all about “It was like he had written out doing this?’ to ‘Why aren’t we doing teamwork.” something beforehand, it was so more of this?’

Not only does he love the work, smooth,” she said.

“Being involved with this program but he has gained more confidence.

The source of her son’s evolution, has been very rewarding. From a His role as supervisor has helped him she said, stems from his fierce professional standpoint, that I played expand his people skills. determination to succeed – plus a a part in launching TLC is my greatest “Before I was not comfortable giant assist from UPS’s Transitional accomplishment.” communicating with people. It forced Learning Center. me to talk to people and that really “The program is responsible so much helped me,” he said. for what Bryce is doing,” she said.

Clayton takes pride in his dedication “They have worked with him, had total to the job. During a snowstorm one faith in him and opened the door for year, Clayton worked a double shift him. I can’t say enough wonderful and stayed overnight at the plant. things about this program.” n

Clayton’s Confidence

T

Bryce Clayton is flanked by fellow UPS workers Teddy Rogers, left, and Lisa Grubb.

2018 Exceptional Family KY

15

CCDD Member Profile

With a Song In His Heart

Music and Self-Advocacy Are at Center of Joe Cowan’s Life

Joe Cowan and his sister Lora Peters with Gov. Matt Bevin

By John Lynch

A

fter nearly seven decades on the planet, CCDD Council member Joe Cowan has yet to meet a stranger. The Monticello resident charms everyone with his outgoing personality and perpetually sunny mood.

It’s as if Cowan always has a song in his heart. Maybe that’s because music has played a central role in his life.

“Music and singing have always been an important part of my life,” he said. “I’ve always wanted to be a singer.”

Cowan, who was born with arthrogryposis – an arthritic condition that cripples a person’s joints – has been in a wheelchair his whole life. As a young man receiving treatment at Cardinal Hill hospital in Lexington, he started a band – the Spinning Wheels. Cowan sang bass for the group of men (all in wheelchairs) who sang covers of popular and soul music.

16

www.lexingtonfamily.com

The Spinning Wheels performed at events at Cardinal Hill and appeared in a TV show about the hospital.

When he attended UK, Cowan sang in the Black Voices Choir, which cut an album with him singing bass.

Currently, Cowan sings in the choir at Emmanuel Temple Holiness Church in Monticello where he serves as an associate pastor. He teaches Sunday School and also preaches.

“I wasn’t always religious, especially

when I first got to Lexington in my 20s,” Cowan said. “But the Lord called me, I surrendered and got saved. I started living a righteous life.

“Now, I sing for the Lord.”

His faith also helps explain Cowan’s optimism and good cheer even though life hasn’t always been easy.

As a homebound child, he didn’t attend school, taking lessons at his house. In 1971, while undergoing rehab at Cardinal Hill, he earned an associate’s degree in accounting at a Lexington business college.

When he returned to Monticello, he struggled to find meaningful work and eventually returned to school, at UK, where he earned a bachelor’s degree in social work in 1994.

Somerset Community College hired him part-time, an opportunity he turned into a full-time position as an instructional specialist with the BEAM (Bringing Education and Achievement to Migrants) program.

He helps migrant workers earn their GED degrees – a job that brings out his best qualities.

Sara Tucker is an Operations Management Specialist at the school and has worked with Cowan for nearly 20 years.

“He is such an exceptionally kind and

CCDD Member Profile considerate person,” she said. “He can talk to anybody and makes friends with people in a minute.

“He’s an exceptional listener and treats everyone with respect.”

Cowan, who earned his master’s degree in 2002 in vocational rehabilitation, is particularly effective when students get discouraged. He simply won’t let them fail. After all, they appreciate the struggles he has overcome.

“He helps students see that you can succeed,” Tucker said. “He’s the embodiment of not letting things hold him back. He’s a brilliant person who has made the most of every day of his life.”

Cowan has been married to Valerie for nearly six years. She has three children and one grandchild from a previous marriage.

Cowan also has a child from a previous marriage. Dominique lives in Montana and has given her father three grandchildren.

“When his grandchildren see him, they all want to sit with Grandpa Joe,” Valerie said. “Joe is always in a good mood. He doesn’t get depressed or feel sorry for himself. He doesn’t feel like he’s different from anyone else. He needs help but there are so many things he can do by himself.”

C

owan calls his life blessed and is encouraged by the progress people with disabilities have achieved in his lifetime.

He remembers less tolerant times, when he struggled in the seat of a manual wheelchair, negotiating the not-so-disability-friendly environment in Lexington in the 1970s. Rolling to bus stops in the cold and rain could dampen anyone’s spirits.

Once, while on the street near the UK

campus on a rainy day, a stranger handed him an umbrella.

“It was memorable because it was so unusual,” he said. “People weren’t so ready to help.

“Now, people are more generous, and people with disabilities are more out there than they used to be, and that’s a good thing.”

Six years ago, Cowan was appointed to the Commonwealth Council on Developmental Disabilities where he has continued his advocacy work.

In Monticello, he is recruited to test buildings for wheelchair accessibility, including doors. “Some doors are so heavy, people in a wheelchair can’t open them,” he said.

Previously, he fought to get restaurants to widen doorways and remove obstacles, efforts that help not only him but the whole community.

“Being on the Council, I feel like I have a voice that can help pave the way for other people with disabilities,” he said. “I love being on the Council because I’m not only benefitting myself but I’m benefitting others.” n

The Autism Society of the Bluegrass serves as resource and support for people in Central Kentucky who care about autism.

es Conferenc nal & Educatio Lectures

Monthly Meetings Monday of Held the last 6:30pm each month, l’s e a at St. Mich urch h C Episcopal te Dr. n fo 2025 Belle Lexington

Reso ur Lend ce ing Libra ry

Bluegrass Autism Walk

Have your rights been violated due to disability?

We can help.

502.564.2967 800.372.2988 Fax 502.695.6764 www.kypa.net

visit our website or facebook page

asbg.org • facebook.com/Autism-Society-of-the-Bluegrass 2018 Exceptional Family KY

17

Resource List 2018

Kimberly Willis of Louisville and her daughter Ella, 5, and son Asher, 4. – Photo by: Michael Reaves •

GENERAL •

Commonwealth Council on Developmental Disabilities 656 Chamberlin Ave., Suite C, Frankfort, Ky., 40601 (877) 367-5332 / (502) 564-7841 www.kyccdd.com The mission of the CCDD is to create systemic change in Kentucky that empowers individuals to achieve full citizenship and inclusion in the community through education, capacity building and advocacy.

CCDD is a dynamic mix of people with unique backgrounds and experiences. Members include 16 governor-appointed individuals with disabilities and family members of individuals with disabilities, as well as representatives from major state agencies that serve people with developmental disabilities.

Adoption Support for Kentucky UK College of Social Work 1500 Bull Lea Road Ste. 194, Lexington Ky., 40511 (859) 257-7361 adoptky@uky.edu / www.uky.edu/trc/ask Adoption Support for Kentucky (ASK) is a statewide program that specializes in the utilization of support groups to offer pre- and post-adoptive support and services to both foster and adoptive parents. ASK provides the opportunity to share resources, suggestions, frustrations and successes with those who share this unique experience. ASK strives to prevent pre-adoption disruption and post-adoption dissolution through peer-led support and

18

www.lexingtonfamily.com

training. There is no cost and any and all are welcome.

Attorney Robert McClelland, LLM, CELA ElderLawLexington McClelland & Associates, PLLC 1795 Alysheba Way, Suite 2102 Lexington, Ky., 40509 / (859) 543-0061 www.elderlawlexington.com Robert L. McClelland is a certified elder law attorney, special needs trustee and guardian with ElderLawLexington the firm of McClelland & Associates, PLLC. He is a member of the Special Needs Alliance, a national alliance of special needs attorneys who focus their practice on benefits planning and caring for those with family members who have special needs.

Attorney Karen L. Perch 2333 Alexandria Drive, Lexington, Ky., 40504 (859) 224-0513 / www.perchlaw.com Karen Perch and her staff are dedicated to helping clients with their legal matters regarding Wills, Living Wills, Powers of Attorney, Trusts, including Special Needs Trusts, Qualifying Income Trusts (Miller Trusts) and Family Trusts and Estate Administration.

All Abilities Drama Camp Jessamine Early Learning Village 851 Wilmore Road, Nicholasville, Ky., 40356 www.allabilitiescamp.blogspot.com Embracing the gifts of all campers through the arts by celebrating difference, skills, personalities and abilities. aadramacamp@gmail.com

ALMOSTfamily/CAREtenders Kentucky Home Health Offices Multiple locations / www.almostfamily.com Alter UR Ego Adaptable clothing for people in wheelchairs to be fashionable and functional. For kids, teens and plus sizes. www.alterurego.co Arc of the United States (800) 433-5255 / 202-534-3700 info@thearc.org / www.thearc.org The national organization of and for people with intellectual disabilities and related developmental disabilities and their families.

The Arc of Kentucky Sherri Brothers, Executive Director 706 East Main St., Suite A, Frankfort, Ky., 40601 (502) 875-5225 / (800) 281-1272 arcofky@aol.com / www.arcofky.org The Arc of Kentucky believes that individuals with intellectual and developmental disabilities are contributing members of schools, work places, churches, synagogues, neighborhoods and their communities. The Arc values services and supports that enhance the quality of life through interdependence, friendship, choice, and respect for individuals with intellectual and developmental disabilities. The Arc’s website includes resources, projects, events, etc., pertinent to individuals with intellectual and developmental disabilities and their families.

The Arc of Kentucky P

T

he Arc of Kentucky – the largest volunteer organization in the state – is a grassroots organization formed in 1955 by a small group of parents. (The national Arc was created in 1950.)

In these critical economic times, The Arc has been affected like many other organizations.

Private donations are key to continuing the work of supporting current programs and developing new ones.

Individuals with developmental and intellectual disabilities are not only benefiting from these programs but are learning new skills to enhance their daily lives.

The Arc of Kentucky 706 E. Main Street, Suite A • Frankfort (502) 875-5225 • (800) 281-1272 www.arcofky.org • Sherri@arcofky.org https://facebook.com/ArcofKentucky/

Arc Conference: Expert Speakers

T

he Arc of Kentucky’s annual conference on Best Practices for People with Intellectual and/or Developmental Disabilities is titled “Together We Grow” and is set for March 8-9 at the Crowne Plaza Louisville Airport Expo Center.

This year’s conference will feature dynamic speakers, including keynote speaker Scott Badesch, President and CEO of the Autism Society of America, which has become a national leader in supporting the daily needs of individuals impacted by autism through outcome-based services and support.

His presentation will address autism and the challenges those in the autism community face to advance opportunities regarding collaboration and national public policy issues.

The other keynote speaker is Karen Wolf-Branigin, Senior Executive Officer, Chapter Growth and Affiliate Relations at the Arc of the United States.

Her topic is “How to Find the Job You Love: Respect, Resourcefulness and Responsibility.”

E O P L E

protecting rights encouraging inclusion optimizing supports promoting choice lifting expectations

Over 60 years of advocating, supporting and empowering people with disabilities & their families

educating communities

Employees seek respectful treatment and want to know about financial features of the job and opportunities to use skills and abilities.

Jennifer Sladen, Senior Program Associate from the Arc of United States, will discuss: “Future Planning: It’s Possible and Necessary.”

Todd Allen, Deputy General Counsel of the state education department, will address the recent U.S. Supreme Court decision in the Douglas County School District case and its impact on Free Appropriate Public Education in Kentucky.

Robert Meachum of the KDE will discuss Physical Restraint and Seclusion, and Lori Gresham will talk about the 1915c Medicaid Home and Community-Based Waiver.

Representatives from the Down Syndrome of Louisville and Autism Society of the Bluegrass will provide sessions, and selfadvocates will present individual sessions. Other topics include community, employment, inclusion, education, self-advocacy, health and safety.

Info: www.arcofky.org. n

Driver Permit Class Is a Success

A

long with Dr. Myra Beth Bundy, Kathie Jane Regan, CDS and Dr. Shirley O’Brien, the Arc of Kentucky will present “Interprofessional Collaboration in a Driving Exploration Group: It’s About Promoting Independence.”

This is a driver’s class in Central Kentucky that can develop mobility skills for community members.

It serves as a gateway to life independence and employment options.

Community mobility skills include negotiating transportation options that lead to driver exploration and driver

permit testing.

The individuals behind the class focused on skills that contribute to driving a motor vehicle or being an informed passenger in a vehicle.

They studied the rules of the road and learned about the practice related skills such as coping with emotions, planning ahead and problem solving.

The Arc of Kentucky is in the process of expanding this class statewide.

The second phase of this program’s goal will be to have individuals obtain their driver’s license.

Info: www.arcofky.org. n 2018 Exceptional Family Family KY KY 2017 Exceptional

19 19

Resource List 2018 The Arc of Kentucky Local Chapters The Arc of Barren County Jini Payne – (270) 791-3162 The Arc of Warren County Loretta Helmes – (270) 816-7213 The Arc of Logan County Shirley Harper – (270) 726-2218 The Arc of Breckinridge County Mark Grimes/Sandra Moyer P.O. Box 37, Harned, Ky., 41044 The Arc of Hardin County Clara Harrison – (270) 300-6659 The Arc of Meade County Beatrice Moore – (270) 422-3778 The Arc of The Greater Louisville Area Serena Jacobs – (502) 939-8273 The Point Arc of Northern Kentucky Judi Gerding – (859) 491-9191 The Arc of Lake Cumberland Vacant The Arc of Owensboro Lisa Prendergrast – (270) 691-0502 The Arc of Floyd County/Prestonsburg Barbara Sword – (606) 478-9803 The Arc of Central Kentucky Sherri Brothers – (502) 517-6511 sherribrothers@bellsouth.net Benchmark Family Services Therapeutic Foster Care Kentucky Administrative Office 118 Dennis Drive, Lexington, Ky., 40503 (859) 899-9515 www.benchmarkfamilyservices.org Provides quality out-of-home placements for youth in need by working with referring agencies to guarantee the support, treatment and care they deserve. Serves children with emotional, mental and physical disabilities along with youth who have been severely neglected or abused.

Therapeutic services include training of foster families.

Benchmark Family Services has offices in Berea, Bowling Green, Columbia, Corbin, Elizabethtown, Florence, Hazard, Lexington, Louisville, Madisonville, Morehead, Owensboro, Owenton, Paducah, Prestonsburg, and Somerset.

436 Georgetown Street, Lexington, Ky., 40508 www.bbbs-bluegrass.org Big Brothers Big Sisters Madisonville-Hopkins County 1 South Main Street, P.O. Box 305 Madisonville, Ky., 42431 www.Madisonvillebbbs.org Big Brothers Big Sisters – Tristate P.O. Box 1844, Ashland, Ky., 41105 www.Bbbstristate.org Big Brothers Big Sisters of Greater Cincinnati Reading Road Suite 148, Cincinnati, Ohio, 45202 www.bigsforkids.org Brighton Center Inc. 741 Central Ave., Newport, Ky., 41071 (859) 491-8303 / www.brightoncenter.com Non-profit organization’s mission is to create opportunities for individuals and families to reach selfsufficiency through family support services, education, employment and leadership. Brighton Center creates an environment that rewards excellence and innovation, encourages mutual respect and maximizes resources.

Build Inclusion, Inc. 1050 Chinoe Road, Suite 106, Lexington, Ky., 40502 (859) 221-6689 www.buildinclusion.org An organization created by parents, self-advocates and industry professionals to facilitate natural networks and community access for individuals with disabilities through education, engagement and employment.

Camp Discovery A three-day all female camp designed to teach women in wheelchairs physical fitness and form lasting relationships.

Sports such as wheelchair tennis, SCUBA diving and horseback riding as well as whole body wellness such as art therapy, nutrition classes, cooking and massage are all incorporated throughout the weekend. www.campdiscoveryco.com

Best Buddies Kentucky 1911A Bardstown Road, Louisville, Ky., 40205 (502) 742-1698 www.bestbuddieskentucky.org Best Buddies Kentucky, founded in 2009, is dedicated to establishing a global volunteer movement that creates opportunities for people with intellectual and developmental disabilities such as Down syndrome, autism and traumatic brain injuries.

Camp Hendon 1640 Lyndon Farm Court, Suite 108, Louisville, Ky., 40223 / (502) 272-2370 www.camphendon.org Camp Hendon is an all-volunteer camp for children (ages 8-17) with Type I diabetes. The camp provides two separate week-long residential camping sessions to empower children to take control of their journey with diabetes.

Big Brothers Big Sisters of Kentuckiana 1519 Gardiner Lane, Louisville, Ky., 40218 (877) 588-2300 / (502) 587-0494 www.bbbsky.org The mission of BBBS is to help all children reach their full potential through professionally supported one-to-one mentoring relationships.

The Center for Courageous Kids 1501 Burnley Road, Scottsville, Ky.,42164 (270) 618-2900 / jobryan@courageouskids.org www.courageouskids.org The Center for Courageous Kids (CCK) is a medical camp where children with disabilities or life-threatening illnesses will experience what a real camp is like, in a setting that is physically safe and medically sound. The camp offers children who are typically watching rather than participating,

Big Brothers Big Sisters of the Bluegrass

20

www.lexingtonfamily.com

the opportunity to fully engage in camp activities that focus on their abilities. Illness specific summer camps for children (7-15) and illness specific family weekend retreats, free of charge.

Center for Accessible Living - Louisville Location 501 S. Second St., Suite 200, Louisville, Ky., 40202 (502) 589-6620 / Toll Free (888) 813-8497 webinfo@calky.org / www.calky.org Center for Accessible Living - Murray Location 1051 N. 16th St., Suite C, Murray, Ky., 42071 (270) 753-7676 / Toll Free (888) 261-6194 calmur@calky.org / www.calky.org Center for Accessible Living - Northern Kentucky P.O. Box 12304, Covington, Ky., 41012 (859) 940-3843 rthompson@calky.org / www.calky.org The Center for Accessible Living is an innovative leader in empowering all people to achieve their goal of independent living while involving the entire community.

Independence Place, Inc. Willis Deitz, Executive Director 2358 Nicholasville Road, Suite 180 Lexington, Ky., 40503 (859) 266-2807 / Toll Free (866) 266-2807 www.ipky.org Independence Place is a non-profit, consumer driven, non-residential Center for Independent Living, serving people with disabilities of all ages. The mission is to assist people with disabilities to achieve their potential for community inclusion through improving access and equal opportunity.

Children’s Home of Cincinnati 5050 Madison Road, Cincinnati, Ohio, 45227 (513) 272-2800 / (513) 808-9632 www.thechildrenshomecinti.org The Children’s Home of Cincinnati is a private, nonprofit social service agency that improves the lives of children and their families through services in four areas: adoption, early childhood, education and mental health.

The Home serves children of all ages and their families, including adoptive children, new parents needing support and guidance, children with special education needs, and children with mental health diagnoses.

Christian Appalachian Project Lexington Location 2528 Palumbo Drive, Lexington, Ky., 40509 (859) 269-0635 / (866) 270-4227 www.christianapp.org CAP is a Kentucky-based, non-profit Christian organization committed to serving people in need in Appalachia by providing physical, spiritual and emotional support through a wide variety of programs and services.

Community Action Kentucky 101 Burch Court, Frankfort, Ky., 40601 (800) 456-3452 / (502) 875-5863 www.kaca.org Community Action Kentucky (CAK) is a statewide

Resource List 2018 association representing and assisting the 23 community action agencies as they work to empower individuals and families to attain greater economic success.

Are We Missing Resources?

Court Appointed Special Advocates for Children Kentucky CASA Network 1640 Lyndon Farm Court, Suite 108 Louisville, Ky., 40223 / (502) 238-2154 www.kentuckycasanetwork.org Court Appointed Special Advocates or CASA volunteers are everyday citizens appointed by judges to advocate for the safety and well-being of abused and neglected children.

Last year in Kentucky, more than 800 CASA volunteers advocated for the best interest of nearly 3,000 children in Kentucky. CASA has 20 offices throughout the state. To locate one in your area, visit the web site above.

ur goal at Exceptional Family Magazine is to provide a comprehensive, statewide list of resources for folks with disabilities. Since we first published this magazine in 2009, each year we have updated and expanded our list of resources many times.

Help us continue to make this Resource Directory as accurate and thorough as possible. If you know of resources in the state or in your part of Kentucky that need to be included, please let us know.

Thanks for your assistance and we look forward to hearing from you.

Easter Seals Cardinal Hill 2050 Versailles Road, Lexington, Ky., 40504 (859) 367-7217 / www.cardinalhill.org

To add to this Resource Directory, simply contact Editor John Lynch by phone (859) 223-1765 or email at john@lexingtonfamily.com. n

Easter Seals West Kentucky 801 N. 29th St., Paducah, Ky., 42001 (270) 444-9687 / www.eswky.easterseals.com Home of the Innocents 1100 E. Market St., Louisville, Ky., 40206 (502) 596-1000 / info@homeoftheinnocents.org www.homeoftheinnocents.org Home of the Innocents is the region’s open arms to kids in crisis, providing therapeutic, loving care to children who are victims of abuse, abandonment and neglect. It’s also home to children who have autism and other behavioral health diagnoses; who are medically fragile; and families with exceptional needs. Open Arms Children’s Health is the Home’s healthcare facility offering pediatric medical, dental, hearing, vision and pharmacy.

Hospice of the Bluegrass (Bluegrass Care Navigators) 2312 Alexandria Drive, Lexington, Ky., 40504 (855) 492-0812 / www.hospicebg.org Bluegrass Care Navigators (formerly Hospice of the Bluegrass) provides physical, emotional and spiritual care for adult and pediatric patients with life-limiting illness, and their families, at home, in nursing facilities and at Hospice Care Centers. Support and bereavement services extend to family members and anyone in the community experiencing grief. Hospice of the Bluegrass provides care in 32 central, northern and southeastern Kentucky counties.

Human Development Institute University of Kentucky 114 Mineral Industries Building, Lexington, Ky., 40506 (859) 257-4356 / www.hdi.uky.edu HDI’s mission is to promote the inclusion, independence and contributions of people with disabilities and their families throughout the life span. HDI achieves that mission through education, research and evaluation, information sharing, leadership and advocacy across the state and the nation.

Kamp KESSA Cedar Fire Farms

O

758 Beechridge Road, Frankfort, Ky., 40601 502-376-4367 / www.cedarfire.net A non-profit resident camp serving populations who are at-risk and have special needs. Kamp KESSA provides adventure education and treatment programs utilizing horses and the wilderness.

Kerrington’s Heart, Inc. P.O. Box 911074, Lexington, Ky., 40591 (859) 509-9857 / www.kerringtonsheart.org Dedicated to the education, support and encouragement of children with heart disease, their families and caregivers.

Key Assets Kentucky 961 Beasley St., Suite 170, Lexington, Ky., 40509 (859) 226-5022 / www.keyassetskentucky.com Key Assets provides support for specialized foster parents who care for children with developmental delays or autism.

New Perceptions 1 Sperti Road, Edgewood, Ky., 41017 (859) 344-9322 / newperceptions.org Non-profit organization has been dedicated to enriching lives of those with intellectual/developmental disabilities since 1952.

NuMotion Louisville Location 11380 Bluegrass Parkway, Jeffersontown, Ky., 40299 (502) 266-9061 Lexington Location 973 Beasley St., Suite 110, Lexington, Ky., 40509 (859) 225-3624 Bowling Green Location 1017 Shive Lane, Suite E, Bowling Green, Ky., 42103 (270) 904-4934 www.numotion.com With a strong local focus, NuMotion aims to be the most responsive and innovative complex wheelchair company with which to do business.

Pathways P.O. Box 790, Ashland, Ky., 41105 (606) 329-8588 / (800) 562-8909 www.pathways-ky.org Kentucky Association of Sexual Assault Programs P.O. Box 4028, Frankfort, Ky., 40604 (502) 226-2704 / erecktenwald@kasap.org www.kasap.org KASAP’s mission is to speak with a unified voice against sexual victimization. KASAP is funded in whole or in part with public funds.

Redwood 71 Orphanage Road, Ft. Mitchell, Ky., 41017 (859) 331-0880 / www.redwoodnky.org A non-profit organization funded by United Way, Redwood guides children and adults with multiple and severe disabilities to achieve independence and reach their highest potential throughout their lives, by providing enriching educational, therapeutic and vocational services.

ResCare 9901 Linn Station Road, Louisville, Ky., 40223 (800) 866-0860 / www.rescare.com Provides supports to people with developmental, cognitive and intellectual disabilities. Services include group homes, supported living, in-home, Telecare, foster or companion care and vocational and habilitation.

Ronald McDonald House Charities of the Bluegrass 1300 Sports Center Drive, Lexington, Ky., 40502 (859) 268-0757 / www.rmhclexington.com This charity exists to create and support programs that directly improve the health and well-being of children and to strengthen families by keeping them together in times of medical need.

The SHINE House 402 North Main Street, Somerset, Ky., 42501

2018 Exceptional Family KY

21

Resource List 2018 (606) 416-5380 www.theshinehouse.com The SHINE House is a nonprofit community arts center whose goal is to provide instruction in a variety of visual arts forms in a creative educational space developed with inclusion in mind.

Shriners Hospital for Children Orthopedic clinic only, will refer for pediatric and adult care 110 Conn Terrace, Lexington, Ky., 40508 (859) 266-2101 www.shrinershospitalsforchildren.org Shriners Hospitals for Children has a mission to provide the highest quality care to children with orthopaedic or neuromusculoskeletal disorders and diseases within a compassionate, family-centered and collaborative care environment.

Social Security Administration (800) 772-1213 / www.ssa.gov Lexington 2241 Buena Vista Road, Suite 110, Lexington, Ky., 40505 Frankfort 140 Flynn Ave., Frankfort, Ky., 40601 Danville 103 Belinda Blvd., Danville, Ky., 40422 Louisville 10503 Timberwood Circle, Suite 50, Louisville, Ky., 40223 Florence 7 Youell St., Florence, Ky., 41042 Elizabethtown 591 Westport Road, Elizabethtown, Ky., 42701 Bowling Green 2724 Chandler Drive, Bowling Green, Ky., 42104 Richmond 1060 Gibson Bay Drive, Richmond, Ky., 40475 Corbin 159 Future Drive, Corbin, Ky., 40701 Campbellsville 101 Hiestand Farm Road, Campbellsville, Ky., 42718 Ashland 1405 Greenup Ave. Suite 132, Ashland, Ky., 41101 Jackson 850 KY-15 N., Jackson, Ky., 41339 Owensboro 4532 Lucky Strike Loop, Owensboro, Ky., 42303 Hazard 122 Reynolds Lane, Hazard, Ky., 41701 Somerset 3975 US-27, Somerset, Ky., 42501 Madisonville 4431 Hanson Road, Madisonville, Ky., 42431 Prestonsburg 1897 Ky. Route 321, Prestonsburg, Ky., 41653 Maysville 509 Market Place Drive, Maysville, Ky., 41056 Hopkinsville 1650 Marie Drive, Hopkinsville, Ky., 42240 Paducah 125 Brett Chase Road, Paducah, Ky., 42003 Special Needs Adoption Program DCBS/Adoption Services

22

www.lexingtonfamily.com

275 East Main St., 3C-E, Frankfort, Ky., 40621 (800) 928-4303 / www.chfs.ky.gov/snap Special Olympics Kentucky 105 Lakeview Court, Frankfort, Ky., 40601 (502) 695-8222 / (800) 633-7403 www.soky.org Special Olympics is the world’s largest program of sports training and competition for children and adults with intellectual disabilities.

STRIDE

150 Maryland Ave., Winchester, Ky., 40391 (859) 744-0370 / www.strideky.org Superior Van & Mobility 1180 E. New Circle Road, Lexington, Ky., 40505 (859) 253-1832 1506 Lakeshore Court, Louisville, Ky., 40223 (502) 447-8267 / www.superiorvan.com Superior Van & Mobility provides mobility solutions for the consumer and commercial transportation industry. Member of the National Mobility Equipment Dealers Association and a participant in NMEDAs Quality Assurance Program, which is recognition reserved for the highest quality mobility dealers.

United Way of the Bluegrass 100 Midland Ave., Suite 300 Lexington, Ky., 40508 211 Information Line / (859) 233-4460 / www.uwbg.org United Way of Kentucky

P.O. Box 4653, Louisville, Ky., 40204 334 E. Broadway, Suite 308, Louisville, Ky., 40204 (502) 589-6897 / www.uwky.org Metro United Way P.O. Box 4488, Louisville, Ky., 40204 (502) 583-2821 / Fax (502) 292-5673 www.metrounitedway.org WHAS Crusade for Children 520 West Chestnut St., Louisville, Ky., 40202 (502) 582-7706 / www.whascrusade.org The WHAS Crusade for Children, established in 1954, raises money for agencies, schools and hospitals to better the lives of children with special needs. The Crusade Advisory Panel, an independent board of interdenominational ministers, decides how donations are distributed each year.

• ADAPTIVE RECREATION • Bowling Green Parks and Recreation Special Populations Division 225 E. Third Ave., Bowling Green, Ky., 42101 (270) 393-3484 www2.bgky.org/bgpr/specialpopulation.php/ Programs and services offered provide all individuals, regardless of their ability level, opportunities for recreation and leisure. People with and without disabilities participate

side by side in an inclusive environment. Activities include Bowling Green Special Olympics (softball, basketball, flag football, bowling, cheerleading, swimming, and track and field), adapted sports (wheelchair basketball, wheelchair tennis and goalball), and social gatherings (holiday parties, movie nights, dances and more).

Easter Seals Adaptive Recreation 2050 Versailles Road, Lexington, Ky., 40504 (859) 246-8816 / cindy.jacobelli@cardinalhill.org www.cardinalhill.org/programs/adaptive-recreation Promotes healthy and active lifestyles for people with physical disabilities through education, exposure to adaptive equipment and adaptive recreation experiences in the community.

Lexington Parks and Recreation Therapeutic Recreation 545 N Upper Street, Lexington, Ky., 40508 (859) 288-2900 / www.lexingtonky.gov/tr Therapeutic Recreation programs provide opportunities for individuals with disabilities to enjoy activities through recreation, leisure and play and to showcase their talents and abilities. Programs are designed to enhance the overall health, wellness and social needs of individuals with disabilities. A variety of recreation and sport opportunities are available such as adult fitness, adaptive aquatics, archery, Miracle League Baseball, cooking, summer camps, drama, hand drumming, art, day-trip outings, overnight excursions, bowling, horsemanship, dance class, special events, Zumba, yoga and more.

Louisville Parks and Recreation Adaptive and Inclusive Recreation 1300 Heafer Road, Louisville, Ky., 40223 (502) 456-8148 www.bestparksever.com Offers adaptive sports and recreation to people in Jefferson and outlying counties. Programs include the state’s only Paralympics Sports Club, plus health and wellness classes such as nutrition, yoga, and exercise and strength training classes. Sports offerings include wheelchair basketball, wheelchair tennis, bocce ball, pickle ball and wheelchair pickle ball, archery, adaptive golf, goal ball and beep baseball for people with low or no vision.

Clinics are offered in track & field, wheelchair lacrosse, sled hockey and more. Louisville is also home to the state wheelchair basketball team, Louisville Spokes & Spires.

• ASSISTIVE TECHNOLOGY • HDI Center for Assistive Technology Services (CATS) 2358 Nicholasville Road, Suite 180 Lexington, Ky., 40503 (859) 218-7979 www.hdi.uky.edu/HDICATS / www.facebook.com/HDICATS

Human Development Institute hdi.uky.edu

Visit the new HDI Center for Assistive Technology Services (HDI CATS) This Regional Assistive Technology Center serving Lexington and surrounding counties offers:

• Lending Library of devices • Demonstration of assistive technologies • Training around assistive technology devices

2538 Nicolasville Rd. Ste. 180 Lexington, KY 40503 hdiatcenter@l.uky.edu | katsnet.at4all.com 859-218-7979

OPPORTUNITY RECOVERY G R O W T H

WE

HELP

YOU

GET

THERE.

Celebrating 50 years of serving Central Kentucky with services in Mental Health, Substance Use and Intellectual and Developmental Disabilities.

24

HOUR

FOR APPOINTMENTS AND SUPPORT: H E L P L I N E 1 . 8 0 0 . 9 2 8 . 8 0 0 0 • www.bluegrass.org

2018 Exceptional Family KY

23

Resource List 2018 CATS is a non-profit, grassroots organization that assists individuals who have disabilities, their families and service providers in connecting with various technologies and services that provide the gateway to greater independence, productivity and quality of life. CATS is a member of the Alliance for Technology Access, The Eastern Regional Center for the Kentucky Assistive Technology Service (KATS) Network.

KATS (Ky. Assistive Technology Service Network Coordinating Center) 8412 Westport Road, Louisville, Ky., 40242 Info@katsnet.org / (800) 327-5287 www.katsnet.org The Kentucky Assistive Technology Locator is a free service of the KATS Network that connects Kentuckians to the AT devices they need to live independently. By registering for an account, you can borrow devices to try, find used devices for free or low-cost, sell used devices, give away devices or place want ads for devices you need.

KATS Project CARAT (800) 327-5287 / info@projectCARAT.org www.katsnet.org/projectCARAT A program of KATS, CARAT enables underserved individuals with disabilities in the Appalachian region of Kentucky by collecting, refurbishing and redistributing assistive technology (AT) and durable medical equipment (DME) through a collaborative network of partners. The goal of Project CARAT is to make Assistive Technology and Durable Medical Equipment more accessible to those who need it in rural Kentucky. In order to make this happen, Project CARAT is partnering with agencies across the state.

To request equipment or for donation information, call ProjectCARAT Hotline (800) 327-5287.

Carl D. Perkins Vocational Training Center 5659 Main St., Thelma, Ky., 41260 (606) 788-7080 / www.cdpvtc.ky.gov Enabling Technologies of Kentuckiana (enTECH) at Spalding University 812 S. Second St., Louisville, Ky., 40203 (502) 992-2448 / www.entech.spalding.edu Kentucky Assistive Technology Loan Corporation 275 East Main St., / Mail Drop 2 E-K Frankfort, KY 40621 / (877) 675-0195 www.katlc.ky.gov The Kentucky Assistive Technology Loan Corporation (KATLC) offers low interest loans for qualified applicants with disabilities for assistive technology. Working with its lending partner, Fifth Third Bank, KATLC can provide loans for modified vehicles, hearing aids, adapted computers, mobility devices, augmentative communication devices or any other type of equipment or home modification that will improve the quality of life or increase the independence of Kentuckians with disabilities.

Kentucky Dept. of Education Exceptional Children 300 Sower Blvd., 5th Floor, Frankfort, Ky., 40601 (502) 564-4770

24

www.lexingtonfamily.com

www.education.ky.gov/specialed/Pages/default.aspx Kentucky Assistive Technology Guidelines 8412 Westport Road, Louisville Ky., 40242 (800) 327-5287 www.katsnet.org/publications/aitis/index.html Redwood Assistive Technology Center 71 Orphanage Road, Ft. Mitchell, Ky., 41017 (800) 728-9807 / www.redwoodnky.org Western Kentucky Assistive Technology Center Wendell Foster’s Campus 815 Triplett St., Owensboro, Ky., 42302 (270) 689-1738 / www.wkatc.org

• AUTISM • The Kelly Autism Program Western Kentucky University Clinical Education Complex 104 Alumni Ave., Bowling Green, Ky., 42101 (270) 745-4KAP (4527) www.wku.edu/kellyautismprogram Wendell Foster’s Kelly Autism Program 815 Triplett St. / P.O. Box 1668 Owensboro, Ky., 42303 / (270) 683-4517 www.wfcampus.org Autism Society of the Bluegrass Support Group P.O. Box 24212, Lexington, Ky., 40524-241 (859) 299-9000 / saraspragens@gmail.com www.asbg.org Autism Society of the Bluegrass, an all-volunteer parent advocacy group, was established in 1991 and is a chapter of ASA. Its mission is to provide education, advocacy and support to families, educators and health providers affected

by ASD in the Bluegrass.

Autism Society of Greater Cincinnati P.O. Box 58385, Cincinnati, Ohio, 45258-0385 (513) 561-2300 / www.autismcincy.org ASGC works to promote awareness and education about autism. ASGC provides information packets, support groups for families and individuals, newsletters and public speakers.

Autism Society of Kentuckiana

P.O. Box 21895, Louisville, Ky., 40221-0895 Rebecca Thompson, Kentucky Resident Contact (502) 263-5708 / www.ask-lou.org Families for Effective Autism Treatment

1100 E. Market St., Louisville, Ky., 40206 (502) 596-1258 / www.featoflouisville.org Hopebridge 1300 E. New Circle Road, Suite 150, Lexington, Ky., 40505 / (859) 685-1019 5215 Commerce Crossings Drive, Louisville, Ky., 40229,

(502) 251-7002 2427 Russellville Road Bowling Green, Ky., 42101 (270) 936-7472) www.hopebridge.com Provides a full range of professional services in one location for a child with Autism Spectrum Disorder and other developmental delays.

University of Louisville Autism Center at Kosair Charities 1405 E. Burnett Ave., Louisville, Ky., 40217 (502) 852-4631 / 800-334-8635 ext. 852-4631 www.louisville.edu/education/kyautismtraining Kentucky Autism Training Center University of Louisville Autism Center at Kosair Charities 1405 E. Burnett Ave., Louisville, Ky., 40217 (502) 852-4631 / 800-334-8635 ext. 852-4631 www.louisville.edu/education/kyautismtraining Lake Area Autism Families Support Group

Michelle Schoremak, President / (270) 978-0680 laaf.msu@gmail.com PACT: Police Autism Community Training (513) 394-1813 www.loveabigaila2.wixsite.com/pact PACT is a non-profit program run by a sibling of an individual with autism aimed at educating and raising autism awareness within Kentucky’s law enforcement departments.

PACT seeks to increase awareness and knowledge through a classroom session focused on improving miscommunication among law enforcement officials and individuals with autism. The session can be followed by a community open house designed to prepare both individuals with autism and law enforcement officials for interactions during an emergency or crisis situation. Contact PACT for a training in your community.

Weisskopf Child Evaluation Center 571 South Floyd St., Suite 100, Louisville, Ky., 40202 (502) 588-0907 www.louisville.edu/medschool/pediatrics/clinical/wcec Provides center-based and outreach diagnostic evaluations and treatment to infants and children with, or at risk for, developmental disabilities, congenital anomalies, genetic disorders, autism, organic behavior disorders (ADHD) and learning disabilities, as well as genetic counseling to adults.

• DOWN SYNDROME • Christian Academy of Louisville Providence School 3110 Rock Creek Drive, Louisville, Ky., 40207 (502) 897-3372 www.caschools.us/down-syndrome-providence-school Serves children with Down syndrome within an inclusive environment to promote language, social and spiritual goals. Students also receive small group instruction to

Resource List 2018 address individual goals. Curriculum and structure are designed to promote spiritual, cognitive, adaptive, language, motor and self-help skills. A Family Service Plan/IFSP is written with each family specific to the needs of their child.

This program works in relationship with Down Syndrome of Louisville. Currently offering Junior Academy-third grade and scheduled to expand each year.

Down Syndrome Association of Central Kentucky 1050 Chinoe Road, Suite 204, Lexington, Ky., 40502 (859) 494-7809 / www.dsack.org DSACK exists to celebrate the Down syndrome community, support individuals with Down syndrome and their families, educate the Central Kentucky community and assist in local and national research efforts. DSACK celebrates that all people are beautiful, capable and loved.

Serves Central and Eastern Kentucky.

Down Syndrome Association of Greater Cincinnati 4623 Wesley Ave., Suite A, Cincinnati, Ohio, 45212 (513) 761-5400 / www.dsagc.com By providing families with support, inspiration and information, the Association helps individuals with Down syndrome achieve their maximum potential. Including individuals with Down syndrome in neighborhood schools, community activities and the business world benefits individuals and their respective communities.

Green River Area Down Syndrome Association Owensboro and surrounding area P.O. Box 2031, Owensboro, Ky., 42302 (270) 681-5313 / info@gradsa.org / www.gradsa.org GRADSA’s mission is to enable families enriched with Down syndrome connection to share resources, build friendships, and advocate together for the future of individuals with Down syndrome.

Down Syndrome of Louisville 5001 South Hurstbourne Parkway Louisville, Ky., 40291 / (502) 495 5088 www.downsyndromeoflouisville.org Down Syndrome of Louisville is a non-profit organization founded in 1977 whose mission is to improve the lives of persons with Down syndrome and their families by providing support, information, education, and advocating for their rights and concerns, enabling individuals to reach their full potential.

Down Syndrome Assn. of South Central Kentucky PO Box 1611, Bowling Green, Ky., 42101 (270) 796-5002 info@dssky.org / www.dssky.org Down Syndrome Association of Western Kentucky (270) 559-9026 P. O. Box 7366, Paducah, Ky., 42002-7366 upsandowns@dsawk.com / www.dsawk.com DSAWK promotes public awareness and acceptance of individuals with Down syndrome by providing information, resources and support in our community. Generally, meetings are on the 3rd Monday of the month at the Heartland Worship Center in Paducah.

National Down Syndrome Congress (NDSC) (800) 232-6372 / (770) 604-9500 info@ndsccenter.org / www.ndsccenter.org The NDSC provides up-to-date information on topics of interest to people with Down syndrome, family members, friends, professionals and interested others. The Center works to promote the availability of and accessibility to a full range of opportunities and/or resources that meet individual and family needs.

National Down Syndrome Society (NDSS) (800) 221-4602 / info@ndss.org / www.ndss.org The mission of the National Down Syndrome Society is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome.

• EPILEPSY • Epilepsy Council of Greater Cincinnati 895 Central Ave., Suite 550, Cincinnati, Ohio, 45202 (513) 721-2905 / (877) 804-2241 efgc@cincinnatiepilepsy.org www.epilepsy-ohio.org Epilepsy Foundation of Kentuckiana 982 Eastern Parkway, Louisville, Ky., 40217 (502) 637-4440 / (866) 275-1078 / www.efky.org

• EDUCATION • Kentucky Adult Education Council on Postsecondary Education 1024 Capital Center Drive, Suite 250 Frankfort, Ky., 40601 (502) 573-5114 V/TTY / www.kyae.ky.gov Creative Learning Center Woodland Early Learning Center 575 Woodland Ave., Lexington, Ky., 40508 (859) 255-3444 www.cclc.com/center/ky/woodland-early-learning-center The Council for Exceptional Children (888) 232-7733 / TTY (866) 915-5000 2900 Crystal Drive, Suite 100 Arlington, VA 22202-3557 www.cec.sped.org The largest international professional organization dedicated to improving educational outcomes for individuals with exceptionalities, students with disabilities, and/or the gifted.

EKU Center for Student Accessibility 521 Lancaster Ave., Whitlock Building, Room 361 CPO 66, Richmond, Ky., 40475 (859) 622-2933 / www.accessibility.eku.edu Provides equal access to University resources, coursework, programs and activities by serving qualified individuals, and advocating for equal access for all

individuals who qualify.

Kentucky Education Rights Center 256 Abbey Road, Versailles Ky., 40383 (859) 983-9222 / kerc@edrights.com Kentucky State Department of Education Rebecca Blessing / (502) 564-4770 300 Sower Blvd., Frankfort, Ky., 40601 https://education.ky.gov The Kidz Club 7140 Preston Highway, Louisville, Ky., 40219 (502) 368-9318 225 N. 25th St., Louisville, Ky., 40212 (502) 365-2426 527 Watson Road, Erlanger, Ky., 41018 (859) 727-0700 2200 Regency Road, Lexington Ky., 40503 (859) 224-0799 www.thekidzclub.com The Kidz Club is a prescribed pediatric extended care facility that provides skilled nursing care for children who are medically fragile in a day care setting. Kidz Club children range from having highly complex medical conditions to kids that simply need to be monitored or have medication delivered. The Kidz Club provides educational enrichment, therapy follow-through, field trips and activities in a fun and social setting. Transportation can be provided.

Medicaid and private insurance accepted. There are no costs to the child or their family.

Music for Life: Music Therapy and Music Education Patricia Guobis, M. M., MT-BC (502) 767-8308 Kentucky State University Disability Resource Center Room 220 of the Student Center Or Room 429 of the Academic Services Building 400 E. Main St., Frankfort, Ky., 40601 (502) 597-5076 / diane.robinson@kysu.edu www.kysu.edu Morehead State University Disability Service 109J Enrollment Services Center, Morehead, Ky. 40351 (606) 783-5188 / e.day@moreheadstate.edu www.moreheadstate.edu/disability This office ensures that the university’s programs, activities, services and the campus itself are accessible to all students and visitors.

Northern Kentucky University Office of Disability Services Northern Kentucky University Student Union, Suite 303, Highland Heights, Ky., 41099 (859) 572-5401 / www.disability.nku.edu NKU provides learner-centered assistance and resources to students with disabilities in their transition to Northern Kentucky University.

Special Needs Homeschooling www.specialneedshomeschooling.com

2018 Exceptional Family KY

25

Resource List 2018 A blog written by a mother with special needs children, the author provides resources she has found helpful in homeschool her children.

University of Kentucky Disability Resource Center 725 Rose St. Multidisciplinary Science Building, Suite 407, Lexington, Ky., 40536 / (859) 257-2754 www.uky.edu/StudentAffairs/DisabilityResourceCenter Resources for prospective and current students and parents.

University of Louisville Disability Resource Center 119 Stevenson Hall, Louisville, Ky., 40292 (502) 852-6938 / askdrc@louisville.edu www.louisville.edu/disability UofL provides support for students with documented disabilities by promoting equal access to all programs and services.

Western Kentucky University Student Accessibility Resource Center Downing Student Union, First Floor, 1074 1906 College Heights Blvd., Bowling Green, Ky., 42101 (270) 745-5004 / www.wku.edu/sarc WKU coordinates services and accommodations for students with documented disabilities.

Public School Parent Resource Centers Cabinet for Health and Family Services 275 E. Main St. Frankfort, Ky., 40621 (502) 564-4986 / www.chfs.ky.gov/dfrcvs/frysc/ Nearly all public schools in the state have Parent Resource Centers, which are divided into 11 Regions. The mission is to remove nonacademic barriers to learning as a means to enhance student academic success. The Centers are also places where families of children with special needs can receive parent-to-parent counseling on special education issues and concerns. Families are welcome to visit and preview materials from the lending library, which has many books, videotapes and periodicals related to disability. The staff can connect parents to resources and support groups and also help with online research.

Region 1: Coordinator Teresa Dixon Counties Served: Ballard, Caldwell, Calloway, Carlisle, Christian, Crittenden, Graves, Fulton, Hickman, Hopkins, Livingston, Lyon, Marshall, McCracken, Muhlenberg, Todd, Trigg Region 2: Coordinator Dianne M. Arnett Counties Served: Butler, Daviess, Hancock, Henderson, Logan, McLean, Ohio, Simpson, Union, Warren, Webster Region 3: Coordinator Naela Imanyara Counties Served: Jefferson Region 4: Coordinator Betty Pennington Counties Served: Boone, Campbell, Carroll, Gallatin, Henry, Kenton, Oldham, Owen, Shelby, Trimble Region 5: Coordinator Paul Cookendorfer Counties Served: Anderson, Bourbon, Clark, Franklin, Grant, Harrison, Jessamine, Madison, Mercer, Nicholas, Pendleton, Scott, Woodford Region 6: Coordinator Barbara Pettus Counties Served: Bullitt, Boyle, Casey, Clinton, Cumberland, Garrard, Lincoln, Marion, McCreary, Nelson, Pulaski, Russell, Spencer, Taylor, Washington, Wayne Region 7: Coordinator Doug Jones

26

www.lexingtonfamily.com

Counties Served: Bath, Boyd, Bracken, Carter, Elliott, Fleming, Greenup, Johnson, Lawrence, Lewis, Martin, Mason, Menifee, Montgomery, Morgan, Robertson, Rowan Region 8: Coordinator Teresa Combs Counties Served: Breathitt, Estill, Knott, Lee, Leslie, Letcher, Owsley, Perry, Powell, Magoffin, Wolfe Region 9: Coordinator Russell Jones Counties Served: Bell, Clay, Harlan, Jackson, Knox, Laurel, Rockcastle, Whitley Region 10: Coordinator Mary Jennings Counties Served: Fayette, Floyd, Pike Region 11: Coordinator Sherrie Baughn Martin Counties Served: Adair, Allen, Barren, Breckinridge, Edmonson, Grayson, Green, Hardin, Hart, Larue, Meade, Metcalfe, Monroe.

VSA Arts of Kentucky P.O. Box 3320, Bowling Green, Ky., 42102 (270) 904-7019 / www.vsartsky.org

• SCHOOLS • Child Development Center of the Bluegrass 290 Alumni Drive, Lexington, Ky., 40503 (859) 218-2322 / www.cdcbg.org Four-Star rated preschool for children with and without disabilities. Services provided include assessment, evaluations, and speech, physical and occupational therapy.

Academy for Individual Excellence 3101 Bluebird Lane, Louisville, Ky., 40299 (502) 267-6187 / www.aiexcellence.com The dePaul School 1925 Duker Ave., Louisville, Ky., 40205 (502) 459-6131 / www.depaulschool.org Growing Together Preschool, Inc. 599 Lima Drive, Lexington, Ky., 40511 (859) 255-4056 / www.gtplex.org Growing Together Preschool has been offering nurturing early child care and education services to children with and without disabilities and other special needs in an inclusive environment since 1982. Additional services include developmental screenings and assessment, physical, occupational and speech therapy, and behavior consultations. Teachers have experience working with children of varying abilities and advantages, and integrating recommended therapeutic practices into the classroom.

GTP is accredited by the National Association for the Education of Young Children, rated 5 STARS through KY ALL STARS and offers a Kentucky Proud farm to preschool menu.

KORE Academy Porter Memorial Church 4300 Nicholasville Road, Lexington, Ky., 40515 (859) 971-7129 / www.koreacademy.org School for children with learning differences: Grades 3-12.

The Langsford Center 9402 Towne Square Ave., Cincinnati, Ohio, 45242 (513) 531-7400 2520 Bardstown Road, Louisville, Ky., 40205 (502) 473-7000 2805 N. Hurstbourne Parkway, Louisville, Ky., 40223 (502) 245-1706 / www.langsfordcenter.com The Lexington School’s The Learning Center 1050 Lane Allen Road, Lexington, Ky., 40504 (859) 278-0501 / www.thelexingtonschool.org The Learning Center provides a unique and essential service to children with language-based differences by offering an alternative to traditional classrooms. By creating a teaching environment that eliminates the major obstacles to learning, students are able to close the gap between achievement and their potential. Teacher-student ratios of 1:4 allow for individualized instruction in the core areas of greatest need. In addition, low student-teacher ratios will be maintained in other subjects such as science, social studies, computer skills, specials and social skills.

Meredith Dunn School 3023 Melbourne Ave., Louisville, Ky., 40220 (502) 456-5819 / www.meredithdunnschool.org Pitt Academy 7515 Westport Road, Louisville, Ky., 40219 (502) 966-6979 / www.pitt.com The Provisions School & Family Counseling Center 128 Dennis Drive, Lexington, Ky., 40503 (859) 396-0644 / www.theprovision.org The Sphinx Academy 1591 Winchester Road, Suite 101 Lexington, Ky., 40505 (859) 309-6372 / www.sphinxacdemy.com New and innovative secondary school for grades 7-12. Combines Montessori, homeschooling and special education.

Sproutlings Pediatric Day Care & Preschool Kosair Charities Center 3800 Tom Larimore Lane, Masonic Home, Ky., 40041 (502) 753-8222 / www.SproutlingsDayCare.com Sproutlings is a dual-licensed program and has spaces for medically fragile children and children in traditional day care or preschool. Staffed by Registered Nurses, Certified Nursing Assistants, Teachers and Teacher Aides and caring for a wide variety of medical conditions. Medicaid and private insurance is accepted.

Stewart Home School 4200 Lawrenceburg Road, Frankfort, Ky., 40601 (502) 227-4821 / www.stewarthome.com Discover a residential school that offers lifelong learning, a postsecondary experience, the opportunity to attain a GED, vocational training and countless social and recreational activities among friends from all around the world.

Summit Academy of Louisville 11508 Main St., Louisville, Ky., 40243 (502) 244-7090 / www.summit-academy.org

Resource List 2018

• KENTUCKY RESOURCES • Cabinet for Health and Family Services Commission for Children with Special Health Care Needs www.chfs.ky.gov/ccshcn The Commission for Children with Special Health Care Needs has received a grant from the federal Health Resources and Services Administration to create Family to Family Health Information Centers throughout the commission offices. The centers will be staffed by mentors who are parents of children with special needs and will provide support to families of individuals with special needs. Parents and caregivers have the opportunity to connect with another parent or caregiver with a similar situation or special health care need.

Locations: Central office / Louisville 310 Whittington Parkway, Louisville, Ky., 40222 (502) 429-4430 / Toll Free (800) 232-1160 Serving Bullitt, Carroll, Gallatin, Henry, Jefferson, Oldham, Owen, Shelby, Spencer, Trimble counties and statewide.

Barbourville 110 Johnson Lane, Barbourville, Ky., 40906 (606) 546-5109 / (800) 348-4279 Serving Bell, Clay, Harlan, Jackson, Laurel, Rockcastle, Knox and Whitley counties.

Bowling Green 2040 Louisville Road Bowling Green, Ky., 42101 (270) 746-7816 / (800) 843-5877 Serving Allen, Barren, Butler, Christian, Edmonson, Hart, Logan, Metcalfe, Monroe, Simpson, Todd and Warren counties.

Elizabethtown 580 Westport Road, Elizabethtown, Ky., 42701 (270) 766-5370 / (800) 995-6982 Serving Breckinridge, Grayson, Hardin, Larue, Marion, Meade, Nelson and Washington counties.

Hazard 103 Town and Country Lane, Suite M, Hazard, Ky., 41701 (606) 435-6167 / (800) 378-3357 Serving Breathitt, Knott, Lee, Leslie, Letcher, Owsley, Perry and Wolfe counties.

Lexington 333 Waller Ave., Suite 300, Lexington, Ky., 40504 (859) 252-3170 / (800) 817-3874 Serving Anderson, Bourbon, Boone, Boyle, Clark, Estill, Fayette, Franklin, Garrard, Grant, Harrison, Jessamine, Kenton, Lincoln, Madison, Mercer, Nicholas, Powell, Scott, and Woodford counties.

Morehead 214 W. First St., Morehead, Ky., 40351 (606) 783-8610 / (800) 928-3049 Serving Bath, Boyd, Bracken, Campbell, Carter, Elliot, Fleming, Floyd, Greenup, Lawrence, Lewis, Magoffin, Mason, Menifee, Morgan, Montgomery, Pendleton, Robertson and Rowan counties.

Owensboro

1600 Breckenridge St., Suite 1200, Owensboro, Ky., 42303 (270) 687-7038 / (877) 687-7038 Serving Daviess, Hancock, Henderson, Hopkins, McLean, Muhlenber, Ohio, Union and Webster counties.

Paducah 400 Park Ave., Bldg. D, Paducah, Ky., 42001 (270) 443-3651 / (800) 443-3651 Serving Ballard, Caldwell, Calloway, Carlisle, Crittenden, Fulton, Graves, Hickman, Livingston, Lyon, Marshall, McCracken, and Trigg counties.

Prestonsburg 5000 Ky. Route 321, Prestonsburg, Ky., 41653 (606) 889-1761/ (800) 594-7058 Serving Floyd, Johnson, Magoffin, Martin, Pike counties.

Somerset Professional Plaza, 401 Bogle St., Suite 104, Somerset, Ky., 42503 / (606) 677-4120 (800) 525-4279 Serving Adair, Casey, Clinton, Cumberland, Green, McCreary, Pulaski, Russell, Taylor and Wayne counties.

Children’s Law Center Covington Office 1002 Russell St., Covington, Ky., 41011 (859) 431-3313 / info@childrenslawky.org Lexington Office c/o Imani Family Life Center 215 W. Short St., Suite 205, Lexington, Ky., 40507 (859) 431-3313 rbdiloreto@childrenslawky.org / www.childrenslawky.org Provides free legal services for children with educational disabilities, and performs research and policy work, training and education in this area.

Kentucky Department for Behavioral Health, Developmental and Intellectual Disabilities 275 E. Main St., Frankfort, Ky., 40621 (502) 564-4527 / (502) 782-6217

www.dbhdid.ky.gov/kdbhdid The department oversees services in Kentucky to people with intellectual and other developmental disabilities, mental health and substance use disorders.

Family to Family Health Information Centers Western Region 310 Whittington Parkway Suite 200 Louisville, KY 40222 Phone: (502) 429-4430 Sondra Gilbert / Sondra.GIlbert@ky.gov (270) 852-5533 Eastern Region (Including Louisville) Debbie Gilbert / DebbieA.Gilbert@ky.gov (502) 429-4430 - Ext. 2069 www.fv-ncfpp.org/index.php/f2fhic/contactf2fhic/?stateId=ky Located at the offices of the Commission for Children With Special Health Care Needs, Family to Family HICs are family-run centers that assist families of children and youth with special health care needs and the professionals who serve them. The goal is to help keep children healthy by promoting regular medical care. F2F HICs help families make more informed choices by providing support, information, resources and training. F2F HICs promote access to community based, self-directed services that are available to children with special needs.

Hart-Supported Living Program (844) 689-6620 www.chfs.ky.gov/dail/hartsupportedliving The Hart-Supported Living program is for Kentuckians with disabilities to request grants so they can live in, contribute to and participate in their communities. Any Kentuckian with a disability recognized under the Americans with Disabilities Act (ADA) is eligible to apply for a HartSupported Living grant.

2018 Exceptional Family KY

27

Resource List 2018 Kentucky ADA Office ADA Coordinator: Donna Shelton 501 High St., Frankfort, Ky., 40601 (502) 564-1835 www.personnel.ky.gov/Pages/ada.aspx The State Office of the Americans with Disabilities Act provides technical assistance, consultations and training for state government employees. Other Kentuckians should contact the Southeast ADA Center at 1419 Mayson St. NE, Atlanta, Ga., 30324. Info: (800) 949-4232 or www. adasoutheast.org Kentucky Assistive Technology Loan Corp.

275 East Main St., Mail Drop 2 E-K Frankfort, Ky. 40621 Toll Free (877) 675-0195 / www.katlc.ky.gov (For more information, please see listing under Assistive Technology on Page 24).

Kentucky Cabinet for Workforce Development Connecting Kentucky to employment, workforce information, education and training. / www.kcc.ky.gov Supported Employment Assists persons with disabilities to find and maintain employment. www.ovr.ky.gov/programservices/se Kentucky Children Insurance Program (K-CHIP) (877) 524-4718 / chfs.kchip@ky.gov www.kidshealth.ky.gov/en K-Chip’s mission is to provide free health insurance to low income, uninsured children in Kentucky. The K-CHIP staff understands that access to health care is very important and that preventive care is a large part of health care.

Kentucky Community Mental Health Centers

28

www.lexingtonfamily.com

Publicly-funded community services are provided for Kentuckians who have problems with mental health, developmental and intellectual disabilities, or substance abuse, through Kentucky’s 14 regional Boards for Mental Health or Individuals with an Intellectual Disability (Regional MHID Boards). Regional MHID Boards are private, nonprofit organizations established by KRS Chapter 210 (see Related Links) which serve residents of a designated multicounty region. www.dbhdid.ky.gov/cmhc/centers.aspx Kentucky Comprehensive Care Centers www.dbhdid.ky.gov/cmhc/centers.aspx Four Rivers Behavioral Health 425 Broadway, Suite 201, Paducah, Ky., 42001 (270) 442-7121 / 24-hour Line (800) 592-3980 www.4rbh.org Serving Ballard, Calloway, Carlisle, Gallatin, Graves, Hickman, Livingston, McCracken and Marshall counties.

Pennyroyal MH / MR Board 3999 Fort Campbell Blvd., Hopkinsville, Ky., 4220 (270) 886-2205 www.pennyroyalcenter.org Serving Caldwell, Christian, Crittenden, Hopkins, Lyon, Muhlenburg, Todd, Trigg counties.

River Valley Behavioral Health, Inc. 1100 Walnut St., P.O. Box 1637, Owensboro, Ky., 42301 (270) 689 6500 www.rvbh.com Serving Davies, Hancock, Henderson, McLean, Ohio, Union, Webster counties.

Lifeskills 380 Suwanee Trail St P.O. Box 6499, Bowling Green, Ky., 42102-6499 / (270) 901-5000 www.lifeskills.com Serving Allen, Barren, Butler, Edmonson, Hart, Logan, Metcalfe, Monroe, Simpson, Warren counties.

Communicare, Inc.

107 Cranes Roost Court, Elizabethtown, Ky., 42701 (270) 765-2605 / www.communicare.org Serving Breckinridge, Grayson, Hardin, Larue, Marion, Meade, Nelson, Washington counties Centerstone Kentucky 101 W. Muhammad Ali Blvd., Louisville, Ky., 40202 (502) 589-8600 www.centerstoneky.org.

Serving Bullitt, Henry, Jefferson, Oldham, Spencer, Shelby, and Trimble counties.

NorthKey Community Care 502 Farrell Drive, P.O. Box 2680, Covington, Ky., 41011 (859) 578-3200 / Toll Free (877) 331-3292 www.northkey.org Serving Boone, Campbell, Carroll, Gallatin, Grant, Kenton, Owen and Pendleton.

Comprehend, Inc. 611 Forest Ave., Maysville, Ky., 41056 (606) 564-4016 www.comprehendinc.org Serving Bracken, Fleming, Lewis, Mason, Robertson counties.

Pathways, Inc. P.O. Box 790. 1212 Bath Ave., 8th floor, Ashland, Ky., 41101 (606) 329-8588 ext. 4078 www.pathways-ky.org Serving Bath, Boyd, Carter, Elliott, Greenup, Lawrence, Menifee, Montgomery, Morgan, Rowan counties.

Mountain Comprehensive Care Center 104 S. Front Ave., Prestsonburg, Ky., 41653 (606) 886-8572 / www.mtcomp.org Serving Floyd, Johnson, Magoffin, Martin, Pike counties.

Ky. River Community Care P.O. Box 794. 178 Community Way, Jackson, Ky., 41339 (606) 666-7591 / krccnet.com Serving Breathitt, Knott, Lee, Leslie, Letcher, Owsley, Perry, Wolfe counties.

Cumberland River Comprehensive Care 1203 American Greeting Card Road, P.O. Box 568, Corbin, Ky., 40702 / (606) 528-7010 www.crbhky.org Serving Bell, Clay, Harlan, Jackson, Knox, Laurel, Rockcastle, Whitley counties.

Adanta MH / MR Board 259 Parkers Mill Road, Somerset, Ky., 42501 (606) 679-4782 / www.adanta.org Serving Adair, Casey, Clinton, Cumberland, Green, McCreary, Pulaski, Russell, Taylor, Wayne counties.

Bluegrass 1351 Newtown Pike, Lexington, KY 40511 (859) 253-1686 / (859) 272-7483 / 24-hour help line (800) 928-8000 / www.bluegrass.org Serving Anderson, Bourbon, Boyle, Clark, Estill, Fayette, Garrard, Harrison, Jessamine, Lincoln, Madison, Mercer, Nicholas, Powell, Scott, Woodford Bluegrass celebrates more than 50 years of service to 17 Central Kentucky counties.

The mission of the non-profit organization is to help individuals and families live their best life. Bluegrass provides services for community members in the areas of intellectual and

Resource List 2018 developmental disability, mental health and substance use.

Kentucky Department of Education: Division of Exceptional Services 300 Sower Blvd., 5th Floor, Frankfort, Ky., 40601 (502) 564-4970 www.education.ky.gov/specialed/excep/Pages/default.aspx Oversees funding, special education programs, data collection, personnel development, monitoring of school districts, curriculum development and more.

Kentucky Coalition Against Domestic Violence 111 Darby Shire Circle, Frankfort, Ky., 40601 (502) 209-5382 / www.kcadv.org In addition to providing a safe, secure environment for victims/survivors and their children, programs now also offer a variety of support services to residents and non-­residents including legal/court advocacy, case management, safety planning, support groups, individual counseling, housing assistance, job search and children’s groups.

Kentucky Education Rights Center, Inc 256 Abbey Road, Versailles, Ky., 40383 (859) 983-9222 / kerc@edrights.com Kentucky First Steps State Lead Agency 275 E. Main St., HS2W-C, Frankfort, Ky., 40621 (877) 417-8377 www.chfs.ky.gov/dph/firstSteps/How+to+Contact+Local+ Point+of+Entry+Offices First Steps is a statewide intervention system that provides services to children with developmental disabilities from birth to age 3 and their families. Administered by the Department for Public Health in the Cabinet for Health and Family Services, First Steps offers comprehensive services through community agencies and service disciplines.

Children who participate in early intervention have significant improvement in development and learning.

Helping to decrease the problems early in a child’s development can reduce or prevent costly educational programs in the future.

Barren River District Point of Entry P.O. Box 6499, 380 Suwannee Trail Bowling Green, Ky., 42103 (270) 901-5749 / (800) 643-6233 Counties served: Allen, Barren, Butler, Edmonson, Hart, Logan, Metcalfe, Monroe, Simpson, Warren Big Sandy District Point of Entry 104 South Front Ave., Prestonsburg, Ky., 41653 (606) 886-4417 / (800) 230-6011 Counties served: Floyd, Johnson, Magoffin, Martin, Pike Bluegrass District Point of Entry 343 Waller Ave., Suite 201, Lexington, Ky., 40504 (859) 271-9448 / (800) 454-2764 Counties served: Anderson, Bourbon, Boyle, Clark, Estill, Fayette, Franklin, Garrard, Harrison, Jessamine, Lincoln, Madison, Mercer, Nicholas, Powell, Scott, Woodford Buffalo Trace District Point of Entry 611 Forest Ave., Maysville, Ky., 41056 (606) 564-3919 / (800) 335-4249 Counties served: Bracken, Fleming, Lewis, Mason, Robertson Cumberland Valley District Point of Entry

P.O. Box 568, Corbin, Ky., 40702 (606) 523-0229 / (800) 509-9559 Counties served: Bell, Clay, Harlan, Jackson, Knox, Laurel, Rockcastle, Whitley.

FIVCO District Point of Entry 5850 U.S. 60, Box 11 Summit Plaza Ashland, Ky., 41102 (606) 929-9155 / (800) 650-1329 Counties served: Boyd, Carter, Elliott, Greenup, Lawrence Gateway District Point of Entry P.O. Box 290, Owingsville, Ky., 40360 (606) 674-3204 / (800) 942-4358 Counties served: Bath, Menifee, Montgomery, Morgan, Rowan Green River District Point of Entry 1501 Breckenridge St., Owensboro, Ky., 42301 (270) 852-2905 / (888) 686-1414 Counties served: Daviess, Hancock, Henderson, McLean, Ohio, Union, Webster Kentuckiana District Point of Entry 312 Whittington Parkway, Suite 020 Lousiville, Ky., 40222 (502) 429-1249 / (800) 422-0087 Counties served: Bullitt, Henry, Jefferson, Oldham, Shelby, Spencer, Trimble Kentucky River District Point of Entry 115 Rockwood Lane, Hazard, Ky., 41701 (606) 439-1325 / (800) 328-1767 Counties served: Breathitt, Knott, Lee, Leslie, Letcher, Owsley, Perry, Wolfe Lake Cumberland District Point of Entry 259 Parkers Mill Road, Somerset, Ky., 42501 (606) 678-2821 / (800) 378-2821 Counties served: Adair, Casey, Clinton, Cumberland, Green, McCreary, Pulaski, Russell, Taylor, Wayne Lincoln Trail District Point of Entry 108 New Glendale Road, P.O. Box 2609 Elizabethtown, Ky., 42702 (270) 737-5921 / (800) 678-1879 Counties served: Breckinridge, Grayson, Hardin, Larue, Marion, Meade, Nelson, Washington Northern Kentucky District Point of Entry North Key: 718 Columbia St., Newport, Ky., 41071 (859) 308-5963 St. Elizabeth: Community Outreach Building 4900 Houston Road, Florence, Ky., 41042 (859) 655-1195 Main Contact: (859) 655-1195 (888) 300-8866 Counties served: Boone, Campbell, Carroll, Gallatin, Grant, Kenton, Owen, Pendleton Pennyrile District Point of Entry 400A Hammond Plaza, Hopkinsville, Ky., 42240 (270) 886-5186 / (877) 473-7766 Counties served: Caldwell, Christian, Crittenden, Hopkins, Lyon, Muhlenberg, Todd, Trigg Purchase District Point of Entry 425 Broadway, Suite 204, Paducah, Ky., 42001 (270) 442-6223 / (800) 648-6599 Counties served: Ballard, Carlisle, Calloway, Fulton, Graves, Hickman, Livingston, Marshall, McCracken.

Kentucky IMPACT Program 275 E. Main St., 4W-G, Frankfort Ky., 40621 (502) 564-4456 Kentucky IMPACT is a statewide program which coordinates services for children with severe emotional disabilities and their families. IMPACT serves children and youth of all ages.

Kentucky Division of Protection and Permanency 275 E. Main St., 3E-A, Frankfort, Ky., 40621 (502) 564-6852 / Fax (502) 564-4653 www.chfs.ky.gov/dcbs/dpp If you believe a child is being abused, neglected or is dependent, call the Protection and Permanency office in your county or the Toll Free Child Protection Hot Line.

1-877-KYSAFE1 or 1-877-597-2331.

Kentucky Office of Victims Advocacy 1024 Capital Center Drive, Suite 200 Frankfort, Ky., 40601 / (502) 696-5312 The Office of Victims Advocacy works to ensure crime victims are treated with respect and dignity as their case proceeds through the criminal justice system. www.ag.ky.gov/about/branches/OVA Kentucky Protection & Advocacy 5 Millcreek Park, Frankfort, Ky., 40601 (800) 372-2988 / (502) 564-2967 www.kypa.net The mission is to protect and promote the rights of Kentuckians with disabilities through legally based individual and systemic advocacy and education. Staff includes professional advocates and attorneys.

Kentucky PTA 148 Consumer Lane, Frankfort Ky., 40601 or P.O. Box 654, Frankfort, Ky., 40602-0654 (502) 226-6607 / kentuckypta@bellsouth.net www.kypta.org Kentucky Special Parent Involvement Network, Inc. (KY-Spin) 10301-B Deering Road, Louisville, Ky., 40272 (502) 937-6894 / (800) 525-7746 Fax (502) 937-6464 / www.kyspin.com KY-SPIN, Inc. is a non-profit organization dedicated to promoting programs that enable persons with disabilities and their families to enhance their quality of life. Fully 85% of all program income goes to direct services to families.

The Kentucky Office of Vocational Rehabilitation www.ovr.ky.gov Office of Vocational Rehabilitation Central Office Cabinet for Human Resources Building 275 E. Main St., Mail Stop 2E-K Frankfort, Ky., 40621 / (502) 564-4440 Bowling Green (270) 746-7489 / (800) 443-6055 (800) 246-6193 (TTY) Elizabethtown (270) 766-5121 / (866) 883-0001 Florence (859) 371-9450 / (877) 371-9451

2018 Exceptional Family KY

29

Resource List 2018 Bluegrass/Lexington (859) 246-2537 / (888) 211-7276 Middletown (502) 426-0145 Whitesburg (606) 633-2568 West Liberty (606) 743-7978 / (800) 440-2530 Louisville (502) 595-4173 / (800) 456-3334 Madisonville (270) 824-7549 / (888) 640-2713 Owensboro (270) 687-7308 / (800) 241-5821 (TTY) (888) 640-2811 Paducah (270) 575-7304 Ashland (606) 920-2338 Carl D. Perkins Center (800) 443-2187 Kentucky Youth Advocates 11001 Bluegrass Parkway, Suite 100 Jeffersontown, Ky. 40299 (502) 895-8167 / (888) 825-5592 www.kyyouth.org The Charles W. McDowell Rehabilitation Center Kentucky Office for the Blind 8412 Westport Road, Louisville, Ky., 40242 (502) 429-4460 / www.blind.ky.gov Pathways to Careers and Special Programs Donnalie Stratton, Program Consultant 300 Sower Blvd., Frankfort, Ky., 40601 (502) 564-4770 / https://education.ky.gov Personal Care Attendant Program Department for Aging and Independent Living 275 E. Main St., 3E-E, Frankfort, Ky., 40621 (502) 564-6930 Ext 3477 www.chfs.ky.gov/dail/pcap Attendant services are provided for people 18 and older with functional loss of two or more limbs and who have the ability to hire and supervise an attendant. Services include assistance with personal care, housekeeping, shopping, travel, self-­care procedures, meal preparation, and other daily activities.

Programs for Children with Disabilities Division of Extended Learning Office of Academic and Professional Development (Ages 3 through 5) 300 Sower Blvd., Frankfort, Ky., 40601 (502) 564-4970 https://education.ky.gov R.E.A.C.H of Lousiville 501 Park Ave., Louisville, Ky., 40208 (502) 585-1911 / www.reachoflouisville.com Supports for Community Living (SCL) Medicaid Waiver Providers Michelle P Medicaid Waiver Providers

30

www.lexingtonfamily.com

http://www.dbhdid.ky.gov/ProviderDirectory/ ProviderDirectory.aspx The Provider Directory is maintained by the Division of Developmental & Intellectual Disabilities. Contact information for provider agencies certified to provide SCL/ Michelle P. Medicaid waiver services may be accessed in this interactive map.

317 East Fifth St., Cincinnati, Ohio, 45202 (513) 651-4747 / www.ohv.dyslexiaida.org A non-profit, scientific and educational organization dedicated to the study and treatment of dyslexia. This Branch was formed to increase public awareness of dyslexia in the Southern Ohio, Southeast Indiana, Kentucky and Huntington, West Virginia areas.

United Partners in Kentucky www.up-in-ky.com UP in Kentucky is a functional, non-compensated partnership to enhance each other’s work on behalf of children, youth and young adults with disabilities and their families. The intention is to collaborate with each other, reduce duplication of effort and help determine and influence policies.

Progressive Educational Program, Inc. Cress, Certified Dyslexia Tester.

212 Venture Way, Somerset, Ky., 42503 (606) 677-2514 www.progressiveeducationalprogram.com Specializing in tutoring children with Dyslexia

Zoom Group 1904 Embassy Square Blvd., Louisville, Ky.,40299 (502) 581-0658 www.zoomgroup.org Zoom Group has been providing supports for individuals with disabilities for over 30 years. Zoom Group’s mission is to EMPOWER, EDUCATE AND EMPLOY people of all abilities.

• LEARNING DIFFERENCES • Wilson Pediatric Therapy 401 Lewis Hargett Circle, Suite 120 Lexington, Ky., 40503 / (859) 475-4305 (859) 899-7323 / www.wilsonpediatric.com Working with children with dyslexia and other learning differences.

Learning Disabilities Assn. of Kentucky 2210 Goldsmith Lane, Suite 118, Louisville, Ky., 40218 (502) 473-1256 / (877) 587-1256 www.LDAofky.org This comprehensive mental health professional program includes the “co-morbid” disorders often found with individuals with learning disabilities, including Anxiety, Depression, Obsessive Compulsive Disorder, Anger Control/ Bipolar Disorder, and ADHD. The International Dyslexia Assn. - Ky. Branch P.O. Box 2011, Lexington, Ky., 40588 (859) 948-0013 / www.idakentucky.org Dyslexia Association of the Pennyrile 583 A Noel Ave., Hopkinsville, Ky., 42240 (270) 885-5804 / www.hopkinsvilledyslexia.org LD Online The world’s leading website on learning disabilities and ADHD. www.ldonline.org/ldresources/local_org/kentucky Ohio Valley Branch of the International Dyslexia Association

• MEDICAL • Associates in Pediatric Therapy 90 Howard Drive, Shelbyville, Ky.,40065 Louisville Area: (502)-633-1007 Lexington Area: (859)-899-2022 Indiana Area: (812)-542-2771 www.kidtherapy.org APT’s unique appeal is that it offers a family approach with multiple pediatric services including Occupational Therapy, Speech Therapy, Physical Therapy, Developmental Intervention, Audiology, and Mental Health Services to the patient and family in a team approach. APT strives to provide therapy in a variety of locations that are appealing to the patient and family. Offices are located in Bullitt County, Shelby County, Jefferson County, Fayette County, Oldham County & Southern Indiana. -- APT partners with other pediatric facilities and preschools to provide therapy in a fun and rewarding environment where the child can feel normal.

Brain Injury Alliance of Kentucky 7321 New LaGrange Road, Suite 100 Louisville, Ky., 40222 (502) 493-0609 / www.biak.us Cardinal Hill Rehabilitation Hospital www.cardinalhill.org Cardinal Hill Rehabilitation Hospital 2050 Versailles Road, Lexington, Ky., 40504 (859) 254-5701 Cardinal Hill Center for Outpatient Services 2050 Versailles Road, Lexington, Ky., 40504 (859) 367-7125 Cardinal Hill Home Care 2050 Versailles Road, Lexington, Ky., 40504 (859) 367-7148 Charles L. Shedd Kentucky Association 4801 Sherburn Lane, LL1, Louisville, Ky. 40207 (502) 656-4453 / www.sheddtutoring.org E-mail: sheddtutoring@gmail.com The Shedd Program provides educational remediation through highly structured teaching methods and materials utilizing a multisensory approach and one-to-one instruction.

Resource List 2018 Cincinnati Children’s Hospital Center for Infants and Children with Special Needs Cincinnati Children’s Hospital Medical Center MLC 7009 3333 Burnet Ave., Cincinnati, Ohio, 45229 (513) 636-3000 / (800) 344-2462 TTY (513) 636-4900 www.cincinnatichildrens.org Early Periodic Screening Diagnostic and Treatment Special Services (EPSDT) Dept. of Medicaid Services, Children’s Health Services (800) 635-2570 / TTY (800) 775-0296 www.chfs.ky.gov/dms/epsdt The EPSDT Screening Program provides routine physicals or well child check-ups for Medicaid eligible children at certain specified ages. EPSDT can also provide speech/language, physical and/or occupation therapy, and specialized durable medical equipment for children who qualify and need those services.

Easter Seals Cardinal Hill 2050 Versailles Road / (859) 367-7217 Creative Beginnings Child Development Center (859) 246-8815 Cardinal Hill Adult Day Health (859) 367-7178 HorseAbility (859) 367-7217 www.cardinalhill.org Promotes healthy and active lifestyles for people with physical disabilities through education, exposure to adaptive equipment and adaptive recreation experiences in the community.

Frazier Rehab Institute 220 Abraham Flexner Way, Louisville, Ky., 40202 (502) 582-7400 www.kentuckyonehealth.org/rehabilitationcarefrazier Health Point Family Care, Covington 1401 Madison Ave., Covington, Ky., 41011 (859) 655-6100 www.healthpointfc.org/location/covington/ Home and Community-Based Waiver (HCB Waiver) (502) 564-5560 / www.chfs.ky.gov/dms/hcb The Home and Community-Based Waiver program provides Medicaid coverage to eligible persons who are aged or disabled, who would otherwise require nursing facility level of care. Services include but are not limited to the following: assessment and reassessment, case management, homemaker services, personal care services, respite care, minor home adaptations, attendant care, and adult day health care.

Horn and Associates in Rehabilitation Greatstone Office 2412 Greatstone Point, Lexington, Ky., 40504 Todds Road Office 4127 Todds Road, Lexington, Ky. 40509 (859) 224-4081 / www.horntherapy.com HRA offers assessments and intervention from a multidisciplinary team including physical therapy, occupational therapy, speech-language pathology, psychology, developmental intervention, social work and case management. HRA provides independent evaluation and

intervention services. HRA addresses concerns of the individual, family and referral sources including physicians, schools and other agencies. Families are encouraged to participate through evaluations and therapy, and a focus is placed on providing services that can generalize into academics, home, community and job settings.

Kentucky Children’s Hospital University of Kentucky, 800 Rose St. Lexington, Ky., 40536 (859) 257-1000 / (800) 333-8874 www.ukhealthcare.uky.edu/KCH Established in 1957, UK HealthCare consists of the medical, nursing, health sciences, public health, dental and pharmacy patient care activities of the University of Kentucky, and in several off-site locations.

Kentucky Transitions (Money Follows the Person Demonstration Grant) Kentucky Department for Medicaid Services Division of Community Alternatives 275 East Main St., 6 W-B, Frankfort, Ky., 40621 (502) 564-0330 Using funding from the Money Follows the Person Demonstration Grant, the Department for Medicaid Services assists eligible individuals to transition

from institutional settings back into the community. www.chfs.ky.gov/dms/archive +mfp+grant+information.htm Michelle P. Waiver

Division of Community Alternatives 275 E. Main St. 6 W-B, Frankfort, Ky., 40621 (855) 459-6328 / (502) 564-1647 / (502) 564-4527 www.chfs.ky.gov/dms/mpw A Medicaid program that helps people live in the community, or return to the community after living in an institution. The Michelle P. Waiver is for anyone with an intellectual or a developmental disability who is eligible to receive services at an ICF/ID (Intermediate Care Facility – Intellectual Disability), like Oakwood, Hazelwood, or Cedar Lake Lodge.

Kids Center Pediatric Therapies 9810 Bluegrass Parkway, Louisville, Ky., 40299 (502) 584-9781 / www.kidscenterky.org Since 1959, the Kids Center for Pediatric Therapies has been helping children with special needs. Each week the Center sees over 300 children facing challenges such as autism, Down syndrome, spina bifida, and cerebral palsy.

2018 Exceptional Family KY

31

Resource List 2018 The Kidz Club 7140 Preston Highway, Louisville, Ky., 40219 (502) 368-9318 225 N. 25th St., Louisville, Ky., 40212 (502) 365-2426 527 Watson Road, Erlanger, Ky., 41018 (859) 727-0700 2200 Regency Road Lexington, Ky., 40503 (859) 224-0799 www.thekidzclub.com The Kidz Club is a prescribed pediatric extended care facility that provides skilled nursing care for children who are medically fragile in a day care setting. Kidz Club children range from having highly complex medical conditions to kids that simply need to be monitored or have medication delivered. The Kidz Club provides educational enrichment, therapy follow-through, field trips and activities in a fun and social setting. Transportation can be provided. Medicaid and private insurance accepted. There are no costs to the child or their family.

Kraska & Associates, Inc. 437 Lewis Hargett Circle, Suite 120 Lexington, Ky., 40503 / (859) 219-0956 Private practice providing occupational and speech therapy services. Family-centered approach. Areas of specialty include sensory integration, sensory processing disorder, fine motor/handwriting, dyspraxia, autism, Asperger’s, articulation, phonological disorders and reading programs.

Marshall Pediatric Therapy 109 Wind Haven Drive, Suite 100 Nicholasville, Ky., 40356 (859) 224-2273 / Fax (859) 224-4675 www.mptcares.com

Offers occupational and speech therapy for Lexington and surrounding counties. The practice accepts EPSDT, most private insurance plans, participates with Kentucky First Steps, and offers payment plans and provides need-based scholarships from ages birth to 21.

NorthKey Community Care 502 Farrell Drive, P.O. Box 2680 722 Scott Blvd Covington, Ky., 41011 (859) 578-3200 / Toll Free 877-331-3292 www.northkey.org Serving Boone, Campbell, Carroll, Gallatin, Grant, Kenton, Owen and Pendleton.

Paving the way to a community healthy in mind and spiri that’s what NorthKey Community Care is working toward in the Cincinnati and Northern Kentucky areas with a comprehensive continuum of mental health, developmental disability and substance abuse care.

Passport Health Plan 5100 Commerce Crossings Drive Louisville, Ky., 40229 (800) 578-0603 EST / TDD (800) 691-5566 Member Services 7 a.m.-7 p.m. (EST) Monday-Friday www.passporthealthplan.com Passport Health Plan is a Medicaid managed care plan that has been coordinating health services to qualified members since 1997. Passport is community-based and providersponsored, and the only non-profit Medicaid health plan available to members in Kentucky. The mission is to “improve the health and quality of life of our members,” which Passport follows every day through exceptional customer service, a large provider network, and case and disease management programs. To learn more about Passport Health Plan, please visit our website, www.passporthealthplan.com., or call our

Member Services department at 1-800-578-0603. TDD users should call 1-800-691-5566.

Safe Kids Fayette County Coalition Kentucky Children’s Hospital 800 Rose St., Lexington Ky., 40536 (859) 323-1153 www.ukhealthcare.uky.edu/safekids Safe Kids Fayette County is a program of Kentucky Children’s Hospital in Lexington and one of more than 650 grassroots coalitions in all 50 states and 17 countries, the District of Columbia and Puerto Rico that brings together health and safety experts, educators, corporations, foundations, governments and volunteers to educate and protect families. Safe Kids Fayette County Coalition is a member of Safe Kids Worldwide, a global network of organizations dedicated to preventing accidental injury. Efforts are needed because as many as 90% of accidental injuries can be prevented.

Safe Kids Coalition Kentucky Led by Kentucky Department of Health 333 Waller Ave., Suite 242 , Lexington, Ky., 40504 (859) 323-6194 / www.safekids.org Fayette County Contact Sherri / Kentucky Children’s Hospital 1000 S. Limestone, Lexington, KY, 40536 859-323-1153 Louisville and Jefferson County Norton Children’s Hospital 315 E. Broadway, Louisville, Ky., 40202 (502) 629-7335 SKY Pediatric Dentistry Dr. Mandy Ashley DMD, MsEd, MS 727 US-31 W. Bypass, Suite 101 Bowling Green, Ky., 42101 / (270) 715-5437 www.skypediatricdentistry.com Dentistry for children and teens with special needs.

Square One Specialists in Child and Adolescent Development 6440 Dutchmans Parkway, Louisville, Ky., 40205 (502) 896-2606 / info@ squareonemd.com www.squareonemd.com Comprehensive Evaluations: Medical, psychological, psychiatric, educational, and speech-language evaluations are offered to help understand differences that impact children’s and adolescents’ development, behaviors, and emotions.

Robert A. Underwood, Ph.D. & Byron White, Psy.D: Edelson and Associates, PSC 7511 New La Grange Road, Louisville, Ky., 40222 (502) 423-1151

32

www.lexingtonfamily.com

Resource List 2018 www.edelsonandassociates.info Neuropsychological, ADHD, Learning Disability, Autism and Psychological Disorder Evaluations.

University of Louisville Norton Children’s Hospital 231 E. Chestnut St., Louisville, Ky., 40402 (502) 629-6000 / www.kosairchildrenshospital.com Norton Children’s Hospital is a 253-bed teaching facility and serves as a referral center for central and western Kentucky, and southern Indiana. The hospital is also the primary pediatric teaching hospital for the University of Louisville health sciences program. Each year there are approximately 8,000 admissions, 50,000 Emergency Department visits and 10,500 outpatient clinic visits.

Dr. F. Allen Walker Creative Psychiatry P.L.L.C. P.O Box 23509, Louisville, Ky., 40223 (502) 384-ADHD (2343) / drwalker@louisvilleadhd.com www.louisvilleadhd.com

• MENTAL HEALTH • 360 Mental Health Services Dr. Tim Houchin 1517 Nicholasville Road, Suite 302, Lexington, Ky., 40515 (859) 948-9471 / tim@360mentalhealth.com www.360mentalhealth.com Dr. Tim is one of only 203 physicians triple board certified in child/adolescent psychiatry, general psychiatry and forensic psychiatry. He believes in a holistic, 360-degree approach to evaluating and treating both children and adults.

Acquired Brain Injury (ABI) Waiver (502) 564-5198 / Toll Free (866) 878-2626 Acquired Brain Injury Kentucky Branch 275 E. Main St., 6W-B, Frankfort, Ky., 40621 (502)-564-5198 www.chfs.ky.gov/dms/Acquired+Brain+Injury This program is designed to provide intensive services and support to adults with acquired brain injuries as they work to re-enter community life.

Bluegrass (Bluegrass.org) 1351 Newtown Pike, Lexington, KY 40511 (859) 253-1686 / (859) 272-7483 / 24-hour help line (800) 928-8000 / www.bluegrass.org Bluegrass celebrates more than 50 years of service to 17 Central Kentucky counties. The mission of the non-profit organization is to help individuals and families live their best life. Bluegrass provides services for community members in the areas of intellectual and developmental disability, mental health and substance use.

The Kentucky Assn. of Regional Programs 152 West Zandale Drive, Suite 201 Lexington, Ky., 40503 / (859) 272-6700 www.sites.google.com/site/kentuckycmhcs A state association whose members are 11 of the 14 community mental health centers in Kentucky. KARP can connect citizens to their local community mental health center for information about services and support.

Cedar Lake 9505 Williamsburg Plaza, Suite 200, Louisville, Ky., 40222 (502) 495-4946 / www.cedarlake.org Cedar Lake is committed to providing the highest quality of services to the people it supports. To demonstrate its commitment to the development of a compassionate and capable workforce, Cedar Lake has launched a career development program with ongoing educational opportunities to further sharpen people’s skills. In doing so, Cedar Lake employees develop a heightened sensitivity – or compassion – for the people they support and a clear understanding of how they can best support these individuals to live a life filled with abundant possibilities.

Division of Developmental and Intellectual Disabilities 275 E. Main St., 4CF, Frankfort, Ky., 40621 (502) 564-7702 / www.dbhdid.ky.gov/ddid It is the mission of the Division of Developmental and Intellectual Disabilities to empower each person to realize his or her place in the community as a citizen of Kentucky. To accomplish this mission, DDID will partner with and support persons with intellectual or developmental disabilities, families, advocates, stakeholders and government agencies.

Mental Health America of Kentucky 216 E. Reynolds Road, Suite F, Lexington, Ky., 40517 (859) 684-7778 / mhaky@kih.net / www.mhaky.org Mental Health Association of Northern Kentucky 912 Scott St., Covington, Ky., 41011 (877) 361-4518 / (859) 431-1077 / www.mhanky.org NAMI Kentucky (National Alliance for the Mentally Ill) 2441 S. Hwy. 27, Somerset Ky., 42501 (606) 677-4066 / (800) 257-5081 namiky@bellsouth.net / www.ky.nami.org NAMI Bowling Green Deborah Weed / (270) 796-2606 or (270) 796-2600 Wc2600@outlook.com NAMI Buffalo Trace (Maysville) Sharon Darnell / (606) 584-2716 ndarnell@maysvilleky.net Sharon@namibuffalotrace.org NAMI Cumberland River Wayne Bullock / (606) 256-9250 nami.mtvernon@crccc.org NAMI Danville Reorganizing NAMI Green River Reorganizing NAMI Hazard Jamie Goins (606) 216-8066 Namihazard@yahoo.com NAMI Heartland Gary Barr / (502) 471-4064 gary.barr@geappliances.com NAMI Lexington Anita Hartsfield (859) 245-4442 Achart2@email.uky.edu Phill Gunniing / (859) 272-7891 pgunning@namilex.org NAMI Louisville Nancy Brooks / (502) 588-2008 Nancy.brooks@namilouisville,org NAMI Madison County Olivia Hays / (859) 986-6301 oliviahays@catholichealth.net

NAMI Madisonville Beverly Jones / (270) 664-2101 Bjones.nami@att.net NAMI Morehead Carol Mauriello / (606) 356-9194 camauriello@moreheadstate.edu NAMI Mountain Region Mary Prater / (606) 349-3115 mary.prater@mtcomp.org NAMI Murray Brenda Benson / (270) 748-6133 brenda.benson@murraystate.edu NAMI Northern Kentucky Dorothy Best / (513) 205-4118 dbest@namiky.org NAMI Owensboro Marla Payne / (270) 302-3113 namiowensboro@gmail.com NAMI Paducah Jennifer Lewis / (270) 443-3448 namipaducah@yahoo.com NAMI Somerset Reorganizing NAMI Winchester Brenda Harrington / (859) 749-3702 bebe1@bellsouth.net New Vista Behavioral Healthcare 144 Richie Lane, Somerset, Ky., 42503 (606)772-1120 / www.newvista.org Non-profit organization is dedicated to assisting individuals achieve their full potential through person-centered, community and integrated services. Supports for Community Living provider offers day training programming, supported employment and residential supports within staffed residences as well as family home providers.

Traumatic Brain Injury (TBI) Trust Fund (502) 564-6930 / toniaawells@ky.gov www.chfs.ky.gov/dail/braintrust This program offers flexible, funding and support for people with traumatic brain injuries. The fund supports supplemental community based efforts to meet the special needs of individuals with brain injury.

• PARENT SUPPORT • The Arc of Kentucky Sherri Brothers, Executive Director 706 East Main St., Suite A, Frankfort, Ky., 40601 (502) 875-5225 / (800) 281-1272 arcofky@aol.com / www.arcofky.org (For more information, please see listing under General on Page 18).

Kentucky Partnership for Families and Children, Inc. 207 Holmes St., Frankfort, Ky., 40601 (502) 875-1320 / (800) 369-0533 kpfc@kypartnership.org / www.kypartnership.org KPFC’s vision is that all families raising youth and children affected by behavioral health challenges will achieve their fullest potential. KPFC’s mission is to empower families affected by behavioral health challenges to initiate personal and systems change.

2018 Exceptional Family KY

33

Resource List 2018 have educational opportunities to develop their potential to become educated, life-long learners and productive citizens.

The Council on Developmental Disabilities 1151 South Fourth St., Louisville, Ky., 40203 (502) 584-1239 / Fax (502) 584-1261 info@councilondd.org / www.councilondd.org The mission of The Council is to initiate positive change on behalf of individuals with developmental disabilities. The Council serves people with developmental disabilities of all ages through all stages of life, connecting families to resources and services and providing training and support.

Resources focus on lifelong education and empowerment of constituents. The Council provides support, resources and information to families; advocates on behalf of people of all ages with intellectual and developmental disabilities; initiates changes in laws and regulations that improve public policies, funding and perceptions of people with ID-DD; provides specialized trainings to families (Medicaid waiver, financial planning, guardianship); and offers six-week LEAD (Leadership Education & Advocacy Development) training for parents on special education laws, Individualized Education Plans and principles of advocacy.

Weber Gallery specializes in bringing professional artists and artists with disabilities together in integrated exhibitions.

Weber Gallery, a program of The Council on Developmental Disabilities, provides an inclusive art venue for talented local, regional and national artists, with a vision toward the inclusion and empowerment of artists with developmental disabilities.

Hours: 10 a.m.-4 p.m., Monday-Friday or by appointment.

The Molly Johnson Foundation P.O. Box 215, Fisherville, Ky., 40023 (502) 724-0067 www.themollyjohnsonfoundation.org The Molly Johnson Foundation was created to assist families of children with special needs in a variety of ways, including financial help, supplying medical equipment, home accommodations and travel expenses for services. The Molly Johnson Foundation desires to make a difference in the lives of these families in the best way possible.

• SPEECH, HEARING & LANGUAGE • Heuser Hearing Institute

34

www.lexingtonfamily.com

111-117 E. Kentucky St., Louisville, Ky., 40203 (502) 584-3573 / www.thehearinginstitute.org Heuser Hearing Institute (HHI) is a multi-specialty nonprofit campus promoting the needs of children and adults with disorders of hearing and balance. The organization has servied Louisville and many of the surrounding Kentucky and Indiana communities since 1948.

Lexington Hearing and Speech Center 350 Henry Clay Blvd. Lexington, Ky., 40502 (859) 268-4545 / www.lhscky.org Provides diagnostic, therapeutic and educational services for individuals with hearing, speech and language impairments.

Kentucky Association of the Deaf 303 S. 2nd St., Danville, Ky., 40423-463 www.kydeaf.org Kentucky Commission on the Deaf and Hard of Hearing 632 Versailles Road, Frankfort, Ky., 40601 (502) 573-2604 (V/TTY) / (800) 372-2907 (V/TTY, in Kentucky only) / kcdhh@mail.state.ky.us www.kcdhh.org Kentucky Hands and Voices (888) 398-5030 / www.kyhandsandvoices.org Hands & Voices is a non-profit, parent-driven national organization dedicated to supporting families of children who are deaf or hard of hearing. Organization is nonbiased about communication methodologies and believe that families can make the best choices for their child if they have access to good information and support. Group consists of parents of ASL signers, cued speech users, kids with cochlear implants or total communicators.

Kentucky School for the Deaf 303 South Second St., Danville, Ky., 40422 (859) 239-7017 / www.ksd.k12.ky.us Ensures that deaf and hard of hearing children and youth

Kentucky SpeechLanguage-Hearing Association 838 E. High St., Suite 263, Lexington, Ky., 40502 (800) 837-2446 / khsaoffice@khsa.info www.ksha.info The mission is to enhance the provision of quality services to persons with communication disorders and their families. KSHA provides broad-based education opportunities, public awareness and policy development initiatives, and by supporting professionals in speechlanguage pathology and audiology by promoting the highest standards for service providers.

St. Rita School for the Deaf 1720 Glendale Milford Road, Cincinnati, Ohio, 45215 (513) 771-7600 / www.srsdeaf.org

• SERVICE DOGS • 4 Paws for Ability University of Kentucky UK4PAWS@gmail.com / www.facebook.com/4PawsatUK Kentucky Working K-9 Academy Service Dogs for the Disabled 4856 Lilac Road, Leitchfield, Ky., 42754 (270) 259-3647 www.kentuckyservicedogacademy.com Paws With Purpose P.O. Box 5458, Louisville, Ky., 40255 (502) 689-0804 / Info@PawsWithPurpose.org pawswithpurpose.org Wildcat Service Dogs University of Kentucky www.wildcatservicedogs.org

• SPINA BIFIDA • Cardinal Hill Center for Outpatient Services 2050 Versailles Road, Lexington, Ky., 40504 (859) 367-7125 / www.cardinalhill.org

Resource List 2018 Kids Center Pediatric Therapies 9810 Bluegrass Parkway, Louisville, Ky., 40299 (502) 584-9781 / www.kidscenterky.org Since 1959, the Kids Center for Pediatric Therapies has been helping children with special needs. Each week the Center sees over 300 children facing challenges such as autism, Down syndrome, spina bifida, and cerebral palsy.

Spina Bifida Association of Kentucky Kosair Charities 982 Eastern Parkway, Box 18, Louisville, Ky., 40217 (502) 637-7363 Spina Bifida Association of Kentucky Shriners Hospital for Children 110 Conn Terrace, Lexington, Ky., 40508 (859) 268-5798 sbak@sbak.org / www.sbak.org The Spina Bifida Association of Kentucky is a resource center for children, their families and adults affected by Spina Bifida. SBAK educates parents how to be the best advocate for their child, and helps children and adults overcome physical, cognitive and social challenges to become successful and independent. Our mission is to promote the prevention of Spina Bifida and enhance the lives of all those affected.

• VISION • Silver Circles, Inc. Catherine C. Barnes, Director & Irlen Diagnostician 2396 New Shepherdsville Road, Bardstown, Ky., 40004 (502) 264 7886 / www.silvercirclesinc.com The Irlen Method uses colored overlays and precision tinted filters, worn as glasses, to reduce or eliminate perceptual difficulties and light sensitivity.

Office for the Blind 275 E. Main St., Frankfort, Ky., 40601 (800) 321-6668 / (502) 564-4754 http://kcc.ky.gov/Office-for-the-Blind/Pages/default.aspx Family Eyecare Associates & Children’s Vision and Learning Center Dr. Rick Graebe 105 Crossfield Drive, Versailles, Ky., 40383 (859) 879-3665 / (855) 686-2020 www.myfamilyvision.com Family Eyecare Associates and Dr. Rick Graebe offer the best available eyecare for the entire family. This includes computerized exams for children and adults; and quality eyeglasses, sunglasses and contact lenses. In addition to general optometric services, Family Eyecare offers unique programs such as Vision Therapy for children experiencing difficulty with reading and/or underachievement at school.

Children in these programs average more than a 3-year improvement in performance in 10 to 15 weeks.

Kentucky School for the Blind Division of the Kentucky Department of Education Office of Special Instructional Services 1867 Frankfort Ave., Louisville, Ky., 40206

(502) 897-1583 / www.ksb.k12.ky.us A K-12 public school serving Kentucky students who are blind and visually impaired, offers Short Course program (1-12 weeks) of specialized instruction available to students throughout the school year. Summer school programs are offered in June and July.

Visually Impaired Preschool Service (VIPS) Greater Louisville 1906 Goldsmith Lane, Louisville, Ky., 40218 (502) 636-3207 / (888) 636-8477 www.vips.org VIPS-Central Kentucky 350 Henry Clay Blvd., Lexington, Ky., 40502 (859) 276-0335 / (888-254-8477) www.vips.org The mission of Visually Impaired Preschool Services, Inc. is to offer appropriate services to infants, toddlers and preschoolers who are visually impaired or blind and to their families; and to maximize each child’s development potential through direct services, advocacy and community education. VIPS staff includes certified teachers who specialize in early childhood education, visual impairment, O&M, and special education. Several staff members are also parents of visually impaired children.

• OTHER ORGANIZATIONS •

self-esteem and social skills of your athlete.

Legacy All Sports 261 Ruccio Way, Lexington, Ky., 40503 (859) 977-8862 / www.legacyallsports.com Carousel Kidz is a program to meet your child’s special needs with one-on-one gymnastics lessons.

Central Kentucky Riding for Hope P.O. Box 13155, Lexington, Ky., 40583 (859) 231-7066 / lauriston@ckrh.org www.ckrh.org Operated at the Kentucky Horse Park Under the guidance of trained teachers, volunteers and medical people, disabilities are challenged and new abilities are created. The program has proved successful in helping people with disabilities develop self-esteem, confidence, coordination and a sense of achievement while learning horsemanship and track riding principles.

Cerebral Palsy K.I.D.S. Center Kids Center for Pediatric Therapies 982 Eastern Parkway, Louisville, Ky., 40217 (502) 635-6397 www.kidscenterky.org Since 1959, the Kids Center has served families of children with Down syndrome, spina bifida, cerebral palsy, autism, seizure disorders, and a number of other developmental conditions.

Cassidy’s Cause Therapeutic Riding Academy 6075 Clinton Road, Paducah, Ky., 42001 (270) 554-4040 / www.cassidyscause.org

Crohn’s & Colitis Foundation of America Kentucky Chapter P.O. Box 573, Prospect, Ky., 40059 (877) 283-7513 / Kentucky@ccfa.org www.ccfa.org/chapters/kentucky/

KARRN (Kentucky Appalachian Rural Rehabilitation Network) phkitz1@uky.edu / www.karrn.org A collaborative team composed of individuals impacted by neurological conditions, providers who serve them, members of communities in which they live, advocates, educators and researchers who investigate these conditions.

National Multiple Sclerosis Society Kentucky-Southeast Indiana Chapter 1201 Story Ave., Suite 200 Louisville, Ky., 40206 / (502) 451-0014 www.nationalmssociety.org www.nationalmssociety.org/Chapters/KYW/About-thisChapter/Staff

Toyota Bluegrass Miracle League Plays at Shillito Park in Lexington North Lexington YMCA / (859) 258-9622 www.ymcacky.org/main/toyota-bluegrass-miracle-league/ www.facebook.com/Toyota Bluegrass Miracle League A baseball program for youth and adults with special needs. The leagues play on a specially designed field located at Shillito Park in Lexington. The all-accessible field is the only one of its kind in Kentucky with leagues in both spring and fall.

TASH Disability Advocacy Worldwide (202) 540-9020 / www.tash.org An international association of people with disabilities, family members, other advocates and professionals working for a society in which inclusion of all people in all aspects of society is the norm.

LYSA’s TOPSoccer Program 404 Sporting Court, Lexington, Ky., 40503 (859) 223-5632 / www.lysa.org/tops TOPSoccer (The Outreach Program for Soccer) is a community-based soccer program designed to meet the needs of athletes with physical, developmental, and/or intellectual disabilities. Player participation and development are key elements of the program.

TOPSoccer is designed to improve the overall fitness,

Tourette Syndrome Association Lexington Support Group (606) 225-0946 Louisville Support Group (502) 235-0704 / www.tsa-usa.org

TASH, Kentucky Chapter Located in Louisville Leslie Lederer / (502) 239-4805 www.tash.org/chapters/kentucky-tash/

YMCA of Central Kentucky (859) 254-9622 / www.ymcaofcentralky.org

2018 Exceptional Family KY

n

35

Associates in Pediatric Therapy Advancing Patients to Their Next Therapeutic Level

Speech Therapy, Occupational Therapy, Physical Therapy & Mental Health Offices located in Louisville, Lexington, Southern Indiana & the surrounding areas.

502.633.1007 or 859.899.2022

36

www.lexingtonfamily.com

Kidtherapy.org