Exceptional Family Magazine Summer/Fall 2018

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Summer/FALL 2018

367 Statewide Resource Listings

Not Every Disability Is Visible David Merdian, 21, Is a Senior In the KAP Program at WKU Photo by: Robin Allen A Speciality Publication of

Commonwealth Council on Developmental Disabilities

Independence Integration Inclusion

REPRESENTATIVE AL GENTRY

CLOSING EMPLOYMENT GAP

After Losing His Arm in an Accident, Gentry Now Advocates for Others

KentuckyWorks Advocates for Jobs For Students With Disabilities

SUMMER/ FALL

INDEPENDENCE

INTEGRATION

INCLUSION

4 Letter from the CCDD

10 STABLE Accounts

5 Reader Survey

11 Vote Kentucky

6 CCDD Staff Members

12 Ramp Up Kentucky!

8 Closing the Job Gap

18 Resource List

Staff Member Nicole Maher Writes: What I’ve Learned From My Daughter Complete a Short Survey and Get A Chance to Win $250 Meet the Members and Learn How They Support the CCDD Council KentuckyWorks Is Advocating for Jobs For Students with Disabilities

14

Remember: On Election Day, Accessibility At Polling Places Is Required KATS Program Lends Wheelchair Ramps Throughout the Commonwealth From Autism to Vision Issues, Statewide List Provides Information You Need

16

After Loss of Right Arm, State Rep. Al Gentry Now Advocates for Others

Need More Copies?

David Merdian

Man of the World – And Student In WKU’s Kelly Autism Program

For Additional Free Copies, Call: (859) 223-1765 or email: john@lexingtonfamily.com

Editor..........................John Lynch of Lexington Family Magazine

Graphic Artist...............Blake Barber of Lexington Family Magazine 2

Financial Program Offers More Ways For People With Disabilities to Build Wealth

CCDD Member Profile

One Way or Another

2018

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For the Spanish Version of the Magazine, visit lexingtonfamily.com

2018 Exceptional Family Ky is published by Lexington Family Magazine, Central Kentucky’s premier parenting publication.

138 E. Reynolds Rd. # 201 • Lexington, Kentucky 40517 (859) 223-1765 • www.lexingtonfamily.com • info@lexingtonfamily.com

Commonwealth Council on Developmental Disabilities

The Developmental Disabilities Assistance and Bill of Rights Act of 2000

IT’S THE LAW! On October 30, 2000, Congress Passed Law 106-402. It States:

Congress finds that – (1) disability is a natural part of the human experience that does not diminish the right of individuals with developmental disabilities to live independently, to exert control and choice over their own lives, and to fully participate in and contribute to their communities through full integration and inclusion in the economic, political, social, cultural, and educational mainstream of United States society.

OUR MISSION The Commonwealth Council on Developmental Disabilities will create systemic change in the Commonwealth of Kentucky that empowers individuals with developmental disabilities to achieve full citizenship and inclusion in the community through advocacy, capacity building and systemic change.

The CCDD will enable individuals with developmental disabilities to exercise self-determination, be independent, be productive, and be integrated and included in all facets of community life.

GET INVOLVED TODAY – Join the CCDD Info: (877) 367-5332 or visit www.kyccdd.com

Commonwealth Council on Developmental Disabilities

Letter

Advocacy Works

From the CCDD

By Nicole Maher

Nicole Maher and her daughter, Tarenne

What I’ve Learned From My Daughter am pendent streak. hands on her hips and tell her peers, beyond exMy first born had demanded that “I don’t like your baby talk.” cited to introduce I do things for her. However, as She may have been smaller than myself as the Comsoon as Tarenne could crawl she they were but her large personality monwealth Council on would go to the cabinet and find her ensured that people noticed her and Developmental Disown snack and carry it to me in her took her seriously. abilities Self Advocacy Project mouth so that I could open it.

Tarenne may not have given my Coordinator. husband and me the Almost 19 choice, but we quickly years ago, I reembraced her need to ceived a prenatal make her own decidiagnosis that my Members include people with developmental sions and to stand up second daughter, for herself. disabilities as well as family members and guardians Tarenne, would be This freedom and of people with developmental disabilities. born with Down responsibility has Council members are expected to attend quarterly syndrome. shaped who we are! meetings that last two to three days, and other I immediately Working for the events throughout the year. became an adCouncil is my dream A member serves a three-year term and is limited vocate for her. job. My goal is to help to two terms of service.

I began learnall people realize that Info: www.kyccdd.com or 1-877-367-5332. ing everything I they have the ability could about the and the right to make syndrome and decisions that affect meeting families in my area and Tarenne taught me about self-detheir lives. online who would guide me through termination before I knew there was CCDD has amazing self-advocacy my journey. a term for her desire to do everygoals and I can’t wait to help make I was most inspired by the people I thing on her own. those a reality across our state! met who have Down syndrome.

As a mother I have found it imporIf you are a self-advocate or know They showed me that just because tant for all of my daughters (I now of someone who would like to get my daughter had a diagnosis, I could have four!) to make their own deciinvolved, please contact me. not possibly know who my daughter sions and learn from their mistakes. would be.

For Tarenne, that has been even Tarenne arrived in February of more important.

Nicole Maher, nicole.maher@ky.gov 2000 with a sassy spirit and an indeIn first grade she would put her (502) 226-0784. n

HOW TO BECOME A MEMBER

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YOUR Be among the first 50 to enter a drawing for $250 Fill out the form below and mail it in or take this survey online at: www.lexingtonfamily.com/exceptional-family-reader-survey/

NAME ADDRESS

PHONE STREET:

CITY:

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ARE YOU A: Person with a developmental disability

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2018 Exceptional Family KY

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Advocacy Works

Meet the CCDD Staff

Kellie McCain - Executive Director How I Support the Council: I support the Council by assuring state operations are running efficiently. I provide guidance to Council staff in fulfilling their role as partners with Council members. I help the Council in understanding the DD Act and keeping the goals of the Council’s Five-Year Plan at the helm of our organization.

Katie Bentley - Public Policy Coordinator How I Support the Council: I support the Council by keeping members current on policy activities both at the state and federal levels. I represent the Council at meetings regarding legislation, policies, Governor appointments and disability-related issues. I enjoy helping our Council members have opportunities to grow as advocates and leaders.

Vicki Goins - Federal Grant Manager How I Support the Council: I support the Council by ensuring federal funds are expended in accordance with the CCDD’s federal grant, as well as meeting any reporting requirements of the grant.

Jennifer Hicks - Program Director How I Support the Council: I am part of the CCDD’s programmatic staff and work to implement the Five-Year Plan, as laid out by the Council. I focus on the areas of Capacity Building and Systems Change and deal with issues such as community building, employment, housing and transportation.

Nicole Maher - Self-Advocacy Project Coordinator How I Support the Council: I coordinate projects that the Council includes in the Five-Year Plan regarding self-advocacy. A few of the projects are: help support self-advocacy organizations, provide leadership training for individuals, produce video trainings, and communicate with self-advocates regarding topics that are important to them.

Tim Moore - Front Desk Manager How I Support the Council: I answer incoming calls and transfer them to the appropriate person. If I am unable to direct the person to a staff member who can properly assist them I give callers the appropriate number to call for the help they need. I also assist the Council by helping around the office with whatever needs to be done be it janitorial work or research.

Carol Ann Tudor - Internal Policy Analyst III How I Support the Council: I am “Julie your Cruise Director.” I contact new members, arrange CCDD meetings and reimburse members for their travel. I am the administrative part of the staff.

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We Need Your Help If you want to affect policy, influence legislators and advocate for change,

the CCDD Council is the place for you.

The Commonwealth Council on Developmental Disabilities is a dynamic mix of people with unique backgrounds and experiences.

Members include 16 governor-appointed individuals with disabilities and family members of individuals with disabilities, as well as representatives from major state agencies that serve people with developmental disabilities.

Get Involved Today Join the CCDD

Info: (877) 367-5332 or visit www.kyccdd.com.

Commonwealth Council on Developmental Disabilities

HUMAN DEVELOPMENT INSTITUTE at the University of Kentucky

Closing Employment Gap KentuckyWorks Wants Jobs for Students

By Kathy Sheppard-Jones With Disabilities

S

tudents with the most significant disabilities have the poorest post-school outcomes of any students in our state.

For Kentucky students with functional mental disabilities who exited school in Spring 2015, only 14.1% had engaged in competitive work one year after completing high school.

Similarly, only 13.8% of former students with multiple disabilities and 18.7% of former students with autism had engaged in competitive work in that first year out.

For all other students with IEPs who exited high school that year in Kentucky, 57.9% had obtained competitive employment, according to the Kentucky Post-School Outcomes Center 2017 report.

The gap in employment rates for students with the most significant disabilities in our state – compared to all other Megan former students with disabilities – is at least 40%.

To address this pervasive barrier, the U.S. Administration on Intellectual and Developmental Disabilities funded KentuckyWorks in 2016.

The intent is to create a state-level partnership of nine key agencies (please see list on this page) who share a common goal: to increase positive post-school outcomes (integrated employment, participation in post-secondary education, or both) for students with the most significant disabilities in our state by 20% over the five years of this grant.

We are engaged in a broad array of initiatives to reach this goal.

For example, the project has held a statewide series of Community Conversations focused on developing both state and local strategies for creating employment opportunities for transitionage youth with significant disabilities.

The project website, www. kentuckyworks.org, includes national and state resources for the employment of individuals with disabilities with sections for youth, families, employers and professionals.

The website includes a survey to Ben Majewski works help readers find the resources most at a medical center appropriate for their individual needs.

McCormick of Lexington reads with a student The youth content is also specifically created to be accessible for individuals with intellectual disabilities, including an accessible reading level, photos, audio buttons and a family blog.

The website also includes modules for individuals, families, and professionals to learn about transition and the impact of wages upon government benefits.

Most recently, KentuckyWorks has created a Family and Youth Engagement Curriculum, Seeing a Bright Future. It is designed to help employment professionals, educators and parent advocates inspire parents of children with significant intellectual disabilities.

The message for parents is that employment is possible and can be a meaningful part of their son or daughter’s life.

By raising the expectation of what is possible, and by focusing on training, sharing information and fostering employment-first policies, KentuckyWorks hopes that students with significant disabilities in our state will have the employment opportunities they deserve. n

KentuckyWorks Partner Agencies 1) Commonwealth Council on Developmental Disabilities. 2) Kentucky Department of Education. 3) Office of Vocational Rehabilitation.

4) Division of Intellectual and Developmental Disabilities. 5) Office for the Blind. 6) Kentucky Protection & Advocacy.

7) Kentucky Office on Autism. 8) Kentucky Autism Training Center. 9) Human Development Institute at the University of Kentucky.

Human Development Institute University of Kentucky, 114 Mineral Industries Building Lexington, Ky., 40506 / (859) 257-4356 / www.hdi.uky.edu 8

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CCDD Staff Notes

Professional Development

Katie Bentley: Leadership Conference in Atlanta

C

CDD’s Public Policy Coordinator Katie Bentley returned from a weeklong Leadership Academy in Atlanta and felt like a changed person.

During the last week of June, Bentley was selected as one of 24 participants for the AUCD Leadership Academy, which is sponsored by the Association of University Centers on Disabilities and the Center for Disability Leadership at Georgia State University.

“We did a lot of soul searching, reflected on how we became leaders, studied the landmarks in life, what drives us and learned about our strengths,” Bentley said.

“I took a long look at myself as a leader and I now feel like a different person. I feel energized and renewed. I think differently now.”

Bentley graduated from the second annual Leadership Academy and is one of only two people from DD Councils to participate.

Participants studied disability and civil rights, learned to access their

strengths and inspire strengths in others, and gained tools to support their work within and across the communities and systems that support people with disabilities.

The overall goal is to use these new skills and perspectives to better facilitate the full inclusion of people with disabilities in our society.

The curriculum used was based on the Circle of Trust Touchstones devised by Parker Palmer. The author and activist is the founder of the Center for Courage and Renewal in Seattle.

Participants also visited the Center for Civil and Human Rights, which contains a powerful disability exhibit.

Over the next year, Bentley will use the tools she honed to help grow other leaders in Kentucky to further shape the future of the disability movement.

“I’m listening to everybody differently now and really thinking about where they’re coming from and being intentional that we want to collaborate for change,” she said.

“If we use our strengths and work

Jennifer Hicks: Leadership Training in Delaware

T

he timing couldn’t have been better for Jennifer Hicks, Program Director of the CCDD, to attend a leadership training program hosted by the National Leadership Consortium on Developmental Disabilities at the University of Delaware.

Hicks spent one week in January at the training to help prepare her to meet her leadership challenge for this year, namely to ensure that the CCDD is fully aligned with its core mission amid significant change.

In the past 18 months, the CCDD has seen the following changes: new Executive Director (Kellie McCain), three new staff members and several new Council members, along with becoming

its own designated state agency and moving from the Cabinet of Health and Family Services to the State Treasury office.

The CCDD also moved into new, more spacious offices.

The leadership training included people from DD councils, private companies, direct service providers and consultants. The National Leadership Consortium on Developmental Disabilities is committed to developing and supporting the next generation of leaders in the field.

The week consisted of seminars, presentations, critiques and lots of constructive criticism. The exchange of ideas with peers was invaluable, Hicks

together to shape the future of disability, we will advance the movement. We are building an army of change makers right here in Kentucky.”

Kathy Shepherd-Jones, Director of the Human Development Institute (Kentucky’s University Center for Excellence in Developmental Disabilities), will coach Bentley as she continues to work on those skills.

Bentley not only works for the CCDD, she is the mother of two children with disabilities and advocates as a parent and as a professional. Her goal is to improve the lives of people with disabilities through engaging all stakeholders to make a collective impact.

“I learned from other leaders across the country,” she said, “and now I want to help people here in Kentucky become leaders.” n

said.

“It was great to get input from all these different perspectives,” she said. “It was intensive and tailored to my needs. It was a lot of hard work and I got a lot out of it.”

McCain, a strong believer in staff development, encouraged Hicks to attend.

“I’m glad I went because the conference helped me prioritize things and get a clearer picture of where we need to head,” Hicks said. n 2018 Exceptional Family KY

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Advocacy Works

Allison Ball Says:

A

t the end of this year, STABLE Kentucky will mark its second birthday – and there is much to celebrate because the program has only become better since its inception.

In December 2016, my office launched STABLE Kentucky, Kentucky’s implementation of the Federal ABLE Act. This initiative promotes saving and investing for Kentuckians with disabilities, who, before the passage of ABLE, were unable to build wealth without fear of losing their benefits such as Medicaid and Supplemental Security Income.

In the year and a half since its launch, we have made great strides to improve STABLE Kentucky, and I have joyfully watched as many Kentuckians with disabilities have been positively impacted by STABLE Kentucky Accounts.

Since 2016, the annual contribution limit and the lifetime contribution limit for STABLE Kentucky Accounts have both increased.

This means that account holders can now save up to $15,000 annually and up

“

“

STABLE Kentucky Offers More Ways for People With Disabilities TO BUILD WEALTH

to $462,000 over the course of a lifetime.

Additionally, thanks to By: Allison Ball, Kentucky State Treasurer legislation sponsored during the 2018 General Assembly session holders will have the ability to contribute up

by State Representative Bart Rowland of to $12,060 of income annually, in addition Tompkinsville, STABLE Kentucky Accounts to the annual contribution limit of $15,000. are now tax-free at the state level.

This specifically helps Kentuckians with Before this session, STABLE Kentucky disabilities who cannot contribute to a Accounts were tax-free only at the federal retirement savings plan. level.

One important thing has not changed This legislation also allows for funds from about STABLE Kentucky Accounts – their traditional 529 Savings Accounts to be affordability. transferred to STABLE Kentucky Accounts.

STABLE account holders still pay only $42 We are also excited that in the coming months we will see the biggest expansion of annually, and there are still no additional STABLE Kentucky Accounts to date because operational costs to Kentucky taxpayers!

If you are interested in opening a of the launch of Kentucky’s ABLE to Work STABLE Kentucky Account, please visit efforts following the passage of ABLE to www.stablekentucky.com where you can Work legislation at the federal level.

The ABLE to Work expansion will continue determine your eligibility and open an account.

STABLE Kentucky’s goal of assisting I am excited for the opportunities opening Kentuckians with disabilities in pursuing a STABLE Kentucky account may bring you financial independence. and I look forward to seeing you around our Under the ABLE to Work expansion, employed STABLE Kentucky account great Commonwealth. n

Reader Survey Winner Announced

T

racy Creech, the Director of Special Education for Wolfe County Schools, is the latest winner of Exceptional Family Magazine’s Reader Survey prize of $250.

Creech was chosen at random from among the first 50 entrants in the Reader Survey contest.

An educator with 26 years experience, Creech has been the Director of Special Education for the past 10

www.lexingtonfamily.com

18 years. She values Exceptional Family Magazine and distributes copies to special education teachers in her county and at Countdown to Kindergarten events. She’s also distributes the magazine to United for Kids, a Community Early Childhood Council that serves four counties.

“The magazine is just loaded with resources with contact info, and that’s invaluable to have,” she said. n

Advocacy Works

Election Day: Tuesday, Nov. 6

Make Your Voice Heard

ote

Accessibility at Polling Places Is Required

T

his is an election year (Election Day is Tuesday, Nov. 6) and the Commonwealth of Kentucky wants and needs all its citizens to vote – especially people with disabilities who represent the largest minority group in the state.

Voting will assist your legislators so that they understand what is important to you.

If you know your rights and vote, your voice will be heard!

Registration You must be 18 to vote but you may register when you are 17, if you will turn 18 before the next General election.

You must be registered 30 days before election day. To register online, visit www.

GoVoteKy.com.

If you can’t get to a computer, you can call the State Board of Elections (1-800246-1399 or 502-573-7100) and ask that a voter registration card be mailed to your home.

Polling Locations Every registered voter in the state is assigned a polling place based on where you live. If you don’t know where you should vote, you can call your County Clerk’s office or visit www.GoVoteKy.com.

Proper Identification All voters need to bring proper identification to the polls. You can use a driver’s license or state-issued ID, social security card, credit card or any ID that has both your name and photo on it.

Accessibility By federal law, polling places should be accessible. They must have designated parking spaces that are close to an accessible entrance. The entrance has to be level and can’t have any steps.

You should ask your election officer if you need accommodations or help voting.

At the registration table, you may find items like a white board to communicate if you are deaf or written instructions to help you understand the process.

If you have low vision or are blind, you may need a signature guide or headphones to help you with the process. If you choose the audio ballot, you will have longer than the 2-minute voting time to complete the process.

You should be able to enter the voting booth without difficulty. Accessible, ADAcompliant voting machines should be available and easy to reach.

You may ask for a paper ballot if that would be easier for you.

If you need any help, be sure to ask one of the poll workers. They are there to help you make your vote count!

Report Difficulties If for some reason you have trouble on Election Day, there are resources available to help you immediately. Call Protection & Advocacy’s voter hotline at (800) 3722988. Be sure to report what happened to the Kentucky State Board of Elections at (502) 573-7100 or toll free at (800) 2461399.

Absentee Ballot If you can’t make it to your precinct to vote on Election Day because you are out of town or because of your disability, don’t worry. You can cast an absentee ballot.

To do so, you must contact your local County Clerk’s Office seven (7) days prior to Election Day to receive one. The Clerk’s office will mail the ballot to your home.

You must turn in your ballot by 6 p.m. on Election Day. However, don’t wait to the last minute.

Alison Lundergan Grimes, Secretary of State Apply for an absentee ballot right away to make sure that your vote will count.

If your disability will prevent you from going to your polling place on Election Day, you may vote before Election Day in person at your County Clerk’s office. This is called “in-person absentee ballot” and it is done during the County Clerk’s normal business hours.

Call your local County Clerk to learn more about this option.

Message from Secretary of State Alison Lundergan Grimes As Kentucky’s chief election official it is my privilege to encourage all eligible Kentuckians, especially folks with a disability, to cast their ballot and be a part of our election process.

Here in Kentucky folks with a disability are the state’s largest minority group.

You can have your voice heard from the courthouse to here at the capitol by casting your vote on Election Day. The first step in knowing your rights is knowing how to register. Next is knowing when to show up and vote.

As Secretary of State, I work tirelessly to ensure that every eligible Kentuckian can cast their vote independently and privately, especially those with a disability.

I encourage you to register at www.

GoVoteKy.com, and, more importantly, make sure to translate that registration and participate on Election Day. Go vote, Kentucky! n 2018 Exceptional Family KY

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Advocacy Works

KATS

N•E•T•W•O•R•K

“Disability Solutions Through Technology”

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Pra i se

f

"It's been a godsend for a lot of folks."

or

mp U a R

p Ken t uc

ky !

hen Jimmy Brown of the Kentucky Assistive Technology Services Network applied for a grant from the Christopher Reeve Foundation, he had Kentuckians like the Marshall family of Junction City in mind.

Brandy and her husband Jason have five children, including 10-year-old Rachel, who is non-verbal and non-mobile because of cerebral palsy and epilepsy disorder, and she uses a wheelchair.

With no wheelchair ramp at their home, getting Rachel in and out of the house for everyday things like a trip to the park or a doctor’s visit became a daunting ordeal.

“It was so difficult and time consuming,” Brandy said. “We had to make multiple trips in and out of the house in order to get everything she needed equipment wise.

We’d have to carry her out, and then the wheelchair, and then get her feeding and suction machine and bags.

“It would add an hour to every trip we planned out of the house.”

Everywhere they turned for help led to a dead end, endless paperwork or a waiting list years out.

“I was a firefighter for years, worked in home health and my husband is a disabled Marine,” she said. “We paid our dues and we couldn’t understand why we couldn’t get any help. There are so many families like us that have seen more shut doors than open windows.”

And then a therapist told her about Ramp Up Kentucky!

KATS launched the program last year

risk of injury or re-injury.”

To date, there have been 41 ramps loaned throughout the state, 16 have been returned and 25 are currently are out on loan.

After 180 days, the ramp is returned for other users to one of 15 distribution centers located around the state.

In addition to purchasing and distributing portable ramps, the Ramp Up Kentucky! program gives rampbuilding kits to Kentuckians with difficulties accessing their homes.

To receive a ramp-building kit, the consumer has to agree to purchase lumber and other building materials to build the ramp. Unlike the portable ramps, the ramp-building kits become the property of the consumer and are not returned to a distribution center.

In the meantime, those with temporary ramps have nothing but praise for the program.

“This program is amazing along with the people that work it and help other families in need,” Brandy Marshall said. “The ramps have made it easier to get our daughter out in the community. “Who would ever have thought a piece of metal could change lives in such a big way, but it does change life for us daily.”

Information: (800) 327 5287 or visit www. katsnet.org n

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W

By John Lynch

after receiving a $71,257 High Impact Innovative Assistive Technology grant from the Reeve Foundation that allows KATS to temporarily lend wheelchair ramps to help people with disabilities awaiting a permanent ramp.

When informed of this program, Brandy couldn’t believe it.

“What’s the catch,” she wondered. “In the medical world you hear ‘No’ so often, but with this there was no catch.”

And what a difference it has made in her family’s life.

“Wow, it has made life a thousand times easier,” she said. “It would take 30-40 minutes to load everything up in the van.

Now that time is cut in half.

Now we just roll down the ramp and we’re ready to go.”

Brown, a KATS Network program coordinator and project manager with 12 years experience, has heard nothing but testimonials like that since the program began.

“It’s been a godsend for a lot of folks,” he said. “It’s very gratifying to hear stories like that and we’ve heard many of those stories.”

With the grant, KATS purchased 118 aluminum ramps that range from two feet to 12 feet long. The portable ramps are loaned to Kentucky residents for free for up to 180 days during which KATS provides information and assistance to help borrowers locate funding sources for permanent ramps.

“There is a huge list for people waiting to get permanent ramps.

The wait can be up to one year,” Brown said.

“By loaning ramps, people can go home from hospitals and nursing homes quicker, and prevent admittance into long-term care facilities. It allows more people to stay in their homes and reduces the

“As a case manager on the spinal cord unit at Cardinal Hill, I often have patients that have suffered a spinal cord injury and need resources fast; especially ramps. Ramp Up was easy and helpful. It helped get a person home from the hospital and removed a barrier for a patient trying to adjust to their new normal.”

The Autism Society of the Bluegrass serves as resource and support for people in Central Kentucky who care about autism.

es Conferenc nal & Educatio Lectures

Monthly Meetings Monday of Held the last 6:30pm each month, l’s at St. Michae urch h C l a Episcop te Dr. n fo lle 2025 Be Lexington

Reso ur Lend ce ing Libra ry

Bluegrass Autism Walk

Sept. 9

http://bluegrassautismwalk.org/

asbg.org • facebook.com/Autism-Society-of-the-Bluegrass

2018 Exceptional Family KY

13

Advocacy Works

One Way

orAnother After Loss of Right Arm, State Rep. Al Gentry Now Advocates for Others

By John Lynch

W

hen State Representative Al Gentry, a Democrat from Louisville, lost his right arm in a devastating workplace accident 25 years ago, one thought gave him hope – golf.

“I feel like golf saved my life,” Gentry said when reflecting on the accident that cost him his dominant arm.

“Golf provided me a platform to be successful without the assistance of somebody else. That gave me the self-confidence that sustained me for life in general. In essence, golf has been a rehabilitative tool for me.”

You’d be hard-pressed to find a better example of a successful rehabilitation than Gentry, a 53-year-old State Representative in his first term in office. That seemed like a long shot in the immediate aftermath of his injury.

Working for an environmental consulting firm at the Ford truck plant in Louisville, Gentry, 28 at the time, worked with a crew on testing the subsurface for contamination.

As they concluded the job, a wire attached to a drill bit in the ground latched onto the sleeve of Gentry’s jacket. As the wire twisted out of the ground, Gentry’s arm corkscrewed along with it.

“I had a lot of bleeding so I knew I was in 14

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a life-or-death situation,” he said.

On the unluckiest day of his life (“This was a 100 million-to-one kind of accident”), Gentry caught a few breaks. First, Ford had an emergency response team on site so he received immediate attention.

He also happened to be a short helicopter ride from Louisville’s famous Kleinert Kutz Hand Care Center, which performed the world’s first hand transplant.

In the midst of his agony, Gentry uttered

these words to the staff at the hospital: “Tell Don Fightmaster I’m coming after him.”

What? A little background is necessary to understand the quote.

Gentry was a top youth golfer, rising to No. 3 in the city among high school players. He also attended local pro-celebrity tournaments, which featured Fightmaster, a world class one-armed golfer.

Gentry was fascinated by Fightmaster and followed him around the golf course, amazed by his ability to play with only one arm.

That’s why Gentry invoked Fightmaster’s name before the surgery that cost Gentry his arm. Word of Gentry’s quote reached Fightmaster, who made a beeline for the hospital.

“He was at my bedside and became my inspiration for disabled golf,” Gentry said.

“He is my one-armed father.”

A

fter his recovery, Gentry immersed himself in disabled golf and with a dream and a driving desire to achieve it, eventually made a name for himself as a top golfer.

Using right-handed clubs and a back-handed swing, Gentry started winning tournaments and long drive championships. In 2014, just before his 50th birthday, his 310-yard drive won the

last of his long-drive titles.

At 5-foot-11, 158 pounds, he still routinely hits the ball 260 yards off the tee.

In his first tournament after his accident, Gentry won a television set during a closest-to-the-pin competition. While accepting the gift, he broke down, realizing for the first time in his “new” life that he was going to make it.

For Gentry, golf meant more than individual honors. The owner of his own real estate investment company, Gentry had time to dedicate himself to promoting amputee golf everywhere he went.

“I have introduced golf to a lot of people with disabilities,” he said.

In June 1994, Gentry founded the inaugural Kentucky Amputee Golf Tournament with 28 amputees from five State Rep. Al Gentry and his family: Kyler, 16; his wife Rhonda; and Courtney, 19 states attending.

It was later called the Amputee Players disabled golf organizations under one Championship, becoming one of the top and tried to find out how I can help,” he umbrella – the U.S. Adaptive Golf Alliance events in the United States, annually said. with the aim of getting adaptive golf into drawing 70-80 of the nation’s best amputee For example, he currently is working on the Paralympic Summer Games. If all golfers from the U.S. and Canada. model legislation that would require all goes well, the sport will debut at the 2024 The event is now run by Amputee Golf insurance policies to provide the minimum Games in Paris.

Charities in Shelbyville and will be hosting level of prosthetic and orthopedic care “This is important for adaptive golf its 25th annual event in 2019. covered under the Medicare program. because the visibility of being part of the Gentry also is the founder of the Moreover, getting people with disabilities Paralympic Games will bring much needed North American One-Armed Golfer into the work force has become job one for funding to our sport, and will greatly Association and served for six years as the Gentry. expand our outreach efforts to introduce organization’s first president.

“Government should help put people to more people with disabilities to this He is a past president of the Pleasure work who are able to work, and provide wonderful game.”

Valley Lions Club and helped create the assistance and care for people who can’t,” Hand-for-Heroes program that teaches golf he said. to permanently disabled service veterans.

He has been impressed with the impact In 2011, Gentry received recognition iven Gentry’s exceptional people with disabilities have on a work from the Warrior Transition Battalion at organizational skills and ability to place and is encouraged that employers Fort Bliss, Texas for his support in helping unite people, it’s not surprising who have hired them have taken notice.

Wounded Warriors. that when State Representative Larry “Bring a challenged person to the work Before the 2008 Ryder Cup in Louisville, Clark, who had served in the House for 32 place and everyone’s production goes up,” he worked with his North American and years, retired and sought a replacement for he said. “Other workers are uplifted and European counterparts to launch the his 46th District seat, he looked to Gentry. business owners have experienced that. We Fightmaster Cup, one-armed golf’s version When first approached, Gentry thought, as Americans love it when someone falls of the Ryder Cup. “I’m not a politician.” Two meetings later, down, picks themselves up and gets back to The event was Clark convinced Gentry work.” played at Cardinal that he was the right guy Nobody fits that description better than Club in Simpsonville for the job.

Gentry himself. And he’s now in position to If you can put to coincide with the Gentry’s campaign help others do the same. professional Ryder focused on education, the “We are facing workforce development a person with Cup. economy and jobs, but in challenges in the state and nation, and my This year, Gentry the middle of his first term message is, ‘Let’s not forget people with a disability in and the North he had a revelation: “People disabilities,’” he said. a position to American team with disabilities need a “If you can put a person with a disability will travel to Deal, voice.” in a position to succeed, it’s unlimited what succeed, it's England for the latest Who better to speak for they can do and become. installment of the them than Gentry, who “At that point, they not only begin living unlimited what Fightmaster Cup. immersed himself in the a self-sustaining life, but they become Gentry is currently issues that people with leaders in their communities by inspiring they can do and working to unite disabilities face. “I educated those that come in contact with them.” the nation’s various myself on the landscape Just look at Al Gentry’s story. n become."

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2018 Exceptional Family KY

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CCDD Member Profile

n: Meruddentia Davthid at W KU e W or ld – An d St M an of

A senior in the Kelly Autism Program at WKU, David also has traveled the globe with ports of call at these world capitals: Washington (left), Paris (right), London (bottom)

By John Lynch

I

n his final two years at Trinity High in Louisville, David Merdian, now a senior in the Kelly Autism Program at Western Kentucky University, sang the national anthem before every home football game.

The bass in a four-part a cappella group, David, now 21, was the only member of the group – perhaps one of the few native-born Americans in all the land – who could also sing the national anthem of the now defunct Soviet Union.

“I know all the words in Russian of the first two verses. I have a little trouble with the third verse but that verse was changed in 1977,” he said.

David spouts esoteric information like that all the time. He is a man of many interests – trains, watches, history, science, the law – and has committed to memory a deep understanding of each topic.

One of the first things people comment about David is his memory. Like what?

“I can tell you the characteristics of primates, how a watch or a steam locomotive works,” he said. “I can name a bunch of defunct railroad companies (Southern Pacific, New York Central, Pennsylvania Railroad etc.). I like science and history, military history and the Industrial Revolution.

“I can drone on for hours about the consequences of some minor thing.”

That self-deprecating understanding of his own personality is one of the many reasons that David, who was diagnosed with Asperger’s syndrome and ADHD as a preschooler, is such a popular figure at WKU. 16

www.lexingtonfamily.com

“David is a delightful young man and he is wonderful to converse with,” said Michelle Elkins, Director of Kelly Autism Program. “I have often said that I have to up my vocabulary when I talk with him.

“David has many strong opinions but he’s always good at listening to yours. I enjoy him as much as any student we have here.

“David is extremely intelligent and the way he analyzes information is amazing. I have said that one day David will argue a case before the U.S. Supreme Court.”

High praise indeed – and many recognize David’s intelligence and skills. This summer, he spent his second study abroad tour in England – he’s only the second KAP student to study overseas.

He will graduate WKU with a degree in economics and has already been accepted into the graduate program where he will study applied economics. Law school beckons after that.

Along with those accomplishments, David also is a member of the Commonwealth Council on Developmental Disabilities, a position he calls an honor.

Keep in mind, this is the same person whom doctors said would never graduate high school or live on his own.

“He has far surpassed what his early evaluators thought and that makes me so proud,” said David’s mother, Beth, an actuary at Humana in Louisville.

“He has gone from success to success.

It is amazing that he has accomplished as much as he has.”

D

avid was different from an early age, a non-babbler whose first words came so late his hearing was tested.

The diagnosis instead was Asperger’s – a developmental disorder that falls along

Kelly Autism Program

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he Kelly Autism Program on the Western Kentucky University campus blazed new ground when it debuted 13 years ago and remains a nationwide leader when it comes to providing opportunity for college-ready students who are diagnosed with Autism Spectrum Disorder.

Backed by a donation from Linda and John Kelly of Kentucky, KAP was one of the first of its kind in the country and now offers one of the most comprehensive group of services in the nation.

The program has received national attention, including a front page story in the New York Times.

All of the 60 students enrolled this semester can avail themselves of the following supports: Privacy: Each student can have his/her own single room.

Study Table: Students receive 12 hours a week of tutoring from trained student workers.

Mentoring: KAP students meet once a week with a trained student who helps them connect with campus life.

Structured Social Time: Twice a month, KAP students participate in a social get-

together on campus or in the community such as tailgating at a football game of visiting the Comic-Con convention in Nashville.

Full-Time Mental Health Counselor: Individual and group counseling is available.

This position was added at the suggestion of the students and has been well received, according to KAP Assistant Director Sarah Render.

“Our program has evolved and we like to check in with the students and student workers to see what’s working and what’s not,” said Render, who joined the program 13 years ago as a student-worker.

“A mental health counselor was recommended and this has been a tremendous addition to the program.”

KAP offers more than a college program as well. In fact, it started as an after-school clinic for middle and high school students and still serves that role for students in first through 12th grade.

The Prime Time after-school program currently serves 72 children in the Bowling Green

the Autism spectrum and is marked by difficulty with social interactions and understanding social cues.

Because he was diagnosed early (by 4 years of age), he responded well to speech therapy and gymnastics lessons that addressed physical awkwardness.

“He had every bit of help that he could have gotten,” Beth said.

“My full-time job was to get him the help he needed. I like to think that made a big difference.”

David benefitted from an IEP plan and a classroom aide until he enrolled at Trinity, a private Catholic school where he was treated well by faculty and fellow students.

David was a star of his sophomore history class because he served as a lifeline a la “Who Wants to Be a Millionaire” for fellow students when they played the game in class. “I was really, really good at it,” he said. “Everyone was always phoning me and I think I had a perfect record.”

David also made friends by supplying classmates with pencils.

He always carried extras.

“I lent out pencils left and right and my classmates were grateful,” he said.

One thankful student said to him: “You may not be a Christian but you’re a saint.”

That’s another thing – David is a self-described atheist, which he defines as “a lack of positive belief in any god as opposed to a positive belief that no gods exist.”

area, but some come as far as 90 minutes away.

The program focuses on social language growth and social skills development through group interactions, which are critical for individuals diagnosed with Autism Spectrum Disorder.

Students practice getting along with others, problem solving, friendship skills and taking turns.

Prime Time also includes two groups for adults – Life Skills and Employability.

The Life Skills Group works on daily life skills, safety issues and even light cooking skills.

The Employability Group works on social and employment skills for people not headed for college but who can hold down a job.

Render describes work with the college program as a unique privilege as students transform their lives.

“We see them when they arrive as overwhelmed freshmen and watch the proud moment when they walk on graduation day and get that degree,” she said.

“We get to witness everything that happens for them as they grow into the people they are able to become. “That is a tremendous experience.” n

D

avid strikes a memorable figure at WKU in part because of his distinctive dress – he favors cufflinks and bow ties, and he looks sharp in his suits.

Academic success was no guarantee at WKU. In high school, erratic study skills excluded him from A.P. and advanced classes.

“It was torture to get him to do homework,” Beth said. He would cite studies that claimed homework failed to help students learn and often wasted their time. His conclusion? Homework should be illegal.

Still, he graduated with a 3.95 GPA and rocked a 30 on his ACT. At WKU, he has a 3.27 GPA mainly because of missed homework assignments and late papers.

He’s grateful for the academic and social skills help the Kelly Autism Program provides its students. (For more on the KAP program, please see story this page).

“They help me get my work done and help me focus when I write papers,” he said. “The program helps students advocate for themselves.”

The opportunity to study abroad has been a “life-changing experience for him,” his mother said. The travel part is nothing new – David has been to Italy and France, and for seven straight summers he and his brother visited their father in Hong Kong.

“His study-abroad experiences are the first-time in his life he hasn’t had a built-in support system and he really has matured a lot,” she said.

Please see David Merdian, Page 19 2018 Exceptional Family KY

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Resource List 2018

GENERAL

The Arc of the United States (800) 433-5255 / 202-534-3700 / info@thearc.org The national organization of and for people with intellectual disabilities and related developmental disabilities and their families. www.thearc.org

members of schools, work places, churches, synagogues, neighborhoods and their communities. The Arc values services and supports that enhance the quality of life through interdependence, friendship, choice, and respect for individuals with intellectual and developmental disabilities. www.arcofky.org Kentucky ARC Chapters Barren County: James Cheely / (270) 590-9013 Breckinridge County: Mark Grimes/Sandra Moyer P.O. Box 37, Harned, Ky., 41044 Central Kentucky: Sherri Brothers / (502) 517-6511 Sherri@arcofky.org Floyd County/Prestonsburg: Barbara Sword (606) 478-9803 & Deborah Hall / (606) 478-5249 or (606) 477-3479 Hardin County: Clara Harrison / (270) 300-6659 Logan County: Shirley Harper / (270) 726-2218 Louisville Area: Serena Jacobs / (502) 939-8273 Meade County: Beatrice Moore / (270) 422-3778 Northern Kentucky The Point: Judi Gerding (859) 491-9191 Owensboro: Sally Phillips / (270) 577-8866 Office / (270)-685-2976 Warren County: Loretta Helmes / (270) 816-7213

The Arc of Kentucky Sherri Brothers, 706 East Main St., Suite A, Frankfort, Ky., 40601 / (502) 875-5225 / (800) 281-1272 arcofky@aol.com The Arc of Kentucky believes that individuals with intellectual and developmental disabilities are contributing

Best Buddies Kentucky 1911A Bardstown Road, Louisville, Ky., 40205 (502) 742-1698 Best Buddies Kentucky, founded in 2009, is dedicated to establishing a global volunteer movement that creates

Commonwealth Council on Developmental Disabilities 656 Chamberlin Ave., Suite C, Frankfort, Ky., 40601 (877) 367-5332 / (502) 564-7841 The mission of the CCDD is to create systemic change in Kentucky that empowers individuals to achieve full citizenship and inclusion in the community through education, capacity building and advocacy.

CCDD is a dynamic mix of people with unique backgrounds and experiences. Members include 16 governor-appointed individuals with disabilities and family members of individuals with disabilities, as well as representatives from major state agencies that serve people with developmental disabilities. www.kyccdd.com

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opportunities for people with intellectual and developmental disabilities such as Down syndrome, autism and traumatic brain injuries. www.bestbuddieskentucky.org Big Brothers Big Sisters Organizations The mission of BBBS is to help all children reach their full potential through professionally supported one-to-one mentoring relationships.

Bluegrass 436 Georgetown Street, Lexington, Ky., 40508 www.bbbs-bluegrass.org Greater Cincinnati Reading Road Suite 148, Cincinnati, Ohio, 45202 www.bigsforkids.org Kentuckiana 1519 Gardiner Lane, Louisville, Ky., 40218 (877) 588-2300 / (502) 587-0494 / www.bbbsky.org Madisonville-Hopkins County 1 South Main Street, P.O. Box 305, Madisonville, Ky., 42431 / www.Madisonvillebbbs.org Tristate P.O. Box 1844, Ashland, Ky., 41105 www.Bbbstristate.org Brighton Center Inc. 741 Central Ave., Newport, Ky., 41071 (859) 491-8303 Non-profit organization’s mission is to create opportunities for individuals and families to reach selfsufficiency through family support services, education, employment and leadership. Brighton Center creates and

CCDD 2018-2019

Calendar

Quarterly Council Meetings • Nov. 15-16, 2018 • Feb. 21-22, 2019 • May 23-24, 2019 • Aug. 22-23, 2019 • Nov. 21-22, 2019

All meetings at CCDD Office: 656 Chamberlin Ave. Suite C, Frankfort Info: (877) 367-5332 www.kyccdd.com

The Arc’s National Convention to Meet in Nashville in November

T

he Arc’s National Convention in 2018 is virtually in Kentucky’s backyard with the convention scheduled in Nashville, Thursday-Saturday, Nov. 8-10.

This is an ideal chance for people to join other advocates, professionals and families in building the movement and a stronger, better future for those with intellectual and developmental disabilities.

David Merdian

Learn from expert speakers and sessions on topics like advocacy, federal policy, housing, employment, direct support and more.

The Arc’s National Convention is an annual gathering of families, advocates and professionals in the disability community.

For three days, attendees from across the country have the chance to learn from and with each other,

and expand their knowledge on a variety of topics that affect the lives of them and their loved ones.

Take in the unique culture of Music City USA while making connections with families, professionals and advocates from across the country.

Info: https://convention.thearc. org/about/ n

Continued from Page 17

In 2017, David studied at Harlaxton College, which sits in rural England and whose main building is a 19th century manor house. How did he like the experience?

“I enjoyed every minute of it,” David said. “The building was absolutely gorgeous. It was like going to school every day in the Sistine Chapel.”

This summer in London he served as a data analyst for a public health agency, living by himself in a small dorm room, a 30-minute train ride from work.

He enjoys the work, and sightsees and attends the theater in his spare time.

“He has made some real friends,” Beth said.

That’s no small feat. Social interactions remain a challenge for David. Listen to the analogy he provided to Elkins, the KAP director.

“For people not on the spectrum,” he said, “social interactions are like sailing across a placid lake. No problem.

“For me, it’s like trying to maneuver in

the middle of the Pacific Ocean in the middle of a war, with U-boats and rough water all around. You have to be on guard and on your toes the whole time.”

And that from a person who loves social interaction.

K

AP Assistant Director Sarah Render recommended David for membership on the CCDD Council.

“He takes advocacy very seriously,” she said.

He also takes his role on the CCDD’s Public Policy committee seriously. For Asperger’s and people on the Autism spectrum, he recommends more programs like KAP, calling it an excellent model for all colleges.

“It has been an honor to serve on the Council,” he said. “I’m extremely grateful for the opportunity.”

David has impressed his colleagues on the Council with his intelligence and ear-

nestness, according to Council Chairperson Lela Hale.

“He is so knowledgeable it makes your head spin,” she said. “He’s also a sweet person who has grasped the enormity of being on the Council.

“He takes this seriously, and I see him being a committed leader and doing very well with it.”

Another success for David. n 2018 Exceptional Family KY

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Resource List 2018 encourages mutual respect and maximizes resources. www.brightoncenter.com

801 N. 29th St., Paducah, Ky., 42001 / (270) 444-9687 www.eswky.easterseals.com

Build Inclusion, Inc. 1050 Chinoe Road, Suite 106, Lexington, Ky., 40502 (859) 221-6689 An organization created by parents, self-advocates and industry professionals to facilitate natural networks and community access for individuals with disabilities through education, engagement and employment. www.buildinclusion.org

Home of the Innocents 1100 E. Market St., Louisville, Ky., 40206 (502) 596-1000 / info@homeoftheinnocents.org Home of the Innocents is the region’s open arms to kids in crisis, providing therapeutic, loving care to children who are victims of abuse, abandonment and neglect. It’s also home to children who have autism and other behavioral health diagnoses; who are medically fragile; and families with exceptional needs. Open Arms Children’s Health is the Home’s healthcare facility offering pediatric medical, dental, hearing, vision and pharmacy. www.homeoftheinnocents.org

Centers for Accessible Living The Center for Accessible Living is an innovative leader in empowering all people to achieve their goal of independent living while involving the entire community.

Louisville Location 501 S. Second St., Suite 200, Louisville, Ky., 40202 (502) 589-6620 / Toll Free (888) 813-8497 webinfo@calky.org / www.calky.org Murray Location 1051 N. 16th St., Suite C, Murray, Ky., 42071 (270) 753-7676 / Toll Free (888) 261-6194 calmur@calky.org / www.calky.org Northern Kentucky Location P.O. Box 12304, Covington, Ky., 41012 (859) 940-3843 / rthompson@calky.org / www.calky.org Children’s Home of Cincinnati 5050 Madison Road, Cincinnati, Ohio, 45227 (513) 272-2800 / (513) 808-9632 The Children’s Home of Cincinnati is a private, nonprofit social service agency that improves the lives of children and their families through services in four areas: adoption, early childhood, education and mental health.

The Home serves children of all ages and their families, including adoptive children, new parents needing support and guidance, children with special education needs, and children with mental health diagnoses. www.thechildrenshomecinti.org Christian Appalachian Project 2528 Palumbo Drive, Lexington, Ky., 40509 (859) 269-0635 / (866) 270-4227 CAP is a Kentucky-based, non-profit Christian organization committed to serving people in need in Appalachia by providing physical, spiritual and emotional support through a wide variety of programs and services. www.christianapp.org Community Action Kentucky 101 Burch Court, Frankfort, Ky., 40601 (800) 456-3452 / (502) 875-5863 Community Action Kentucky (CAK) is a statewide association representing and assisting the 23 community action agencies as they work to empower individuals and families to attain greater economic success. www.kaca.org Easter Seals Cardinal Hill 2050 Versailles Road, Lexington, Ky., 40504 (859) 367-7217 / www.cardinalhill.org West Kentucky

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www.lexingtonfamily.com

Hospice of the Bluegrass (Bluegrass Care Navigators) 2312 Alexandria Drive, Lexington, Ky., 40504 (855) 492-0812 Bluegrass Care Navigators (formerly Hospice of the Bluegrass) provides physical, emotional and spiritual care for adult and pediatric patients with life-limiting illness, and their families, at home, in nursing facilities and at Hospice Care Centers. Support and bereavement services extend to family members and anyone in the community experiencing grief. Hospice of the Bluegrass provides care in 32 central, northern and southeastern Kentucky counties. www.hospicebg.org Human Development Institute University of Kentucky, 114 Mineral Industries Building, Lexington, Ky., 40506 (859) 257-4356 HDI’s mission is to promote the inclusion, independence and contributions of people with disabilities and their families throughout the life span. HDI achieves that mission through education, research and evaluation, information sharing, leadership and advocacy across the state and the nation. www.hdi.uky.edu Independence Place, Inc. 2358 Nicholasville Road, Suite 180 Lexington, Ky., 40503 (859) 266-2807 / (866) 266-2807 Independence Place is a non-profit, consumer driven, non-residential Center for Independent Living, serving people with disabilities of all ages. The mission is to assist people with disabilities to achieve their potential for community inclusion through improving access and equal opportunity. www.ipky.org KARRN (Kentucky Appalachian Rural Rehabilitation Network) phkitz1@uky.edu A collaborative team composed of individuals impacted by neurological conditions, providers who serve them, members of communities in which they live, advocates, educators and researchers who investigate these conditions. www.karrn.org Kentucky Association of Sexual Assault Programs

P.O. Box 4028, Frankfort, Ky., 40604 (502) 226-2704 / erecktenwald@kasap.org KASAP’s mission is to speak with a unified voice against sexual victimization. KASAP is funded in whole or in part with public funds. / www.kasap.org Kentucky Partnership for Families and Children, Inc. 207 Holmes St., Frankfort, Ky., 40601 (502) 875-1320 / (800) 369-0533 kpfc@kypartnership.org KPFC’s vision is that all families raising youth and children affected by behavioral health challenges will achieve their fullest potential. KPFC’s mission is to empower families affected by behavioral health challenges to initiate personal and systems change. www.kypartnership.org Kentucky Special Parent Involvement Network, Inc. (KY-Spin) 10301-B Deering Road, Louisville, Ky., 40272 (502) 937-6894 / (800) 525-7746 The mission is to link families and individuals with disabilities to valuable resources that will enable them to live productive, fulfilling lives. A project of KY-SPIN, Inc., is the KY-SPIN Parent Center PTI (Parent Training & Information Project), which is funded by the U.S. Dept. of Education.

KY-SPIN Parent Center provides training, information and support for children and youth with all types of disabilities (birth through 26 years old), their parents, families and professionals. / www.kyspin.com Kentucky Youth Advocates 11001 Bluegrass Parkway, Suite 100, Jeffersontown, Ky. 40299 (502) 895-8167 / (888) 825-5592 KYA advocates for policies that give children the best possible opportunities for a brighter future and are making Kentucky the best place in America to be young. www.kyyouth.org Kerrington’s Heart, Inc. P.O. Box 911074, Lexington, Ky., 40591 (859) 509-9857 Dedicated to the education, support and encouragement of children with heart disease, their families and caregivers. www.kerringtonsheart.org The Molly Johnson Foundation P.O. Box 215, Fisherville, Ky., 40023 (502) 724-0067 The Molly Johnson Foundation was created to assist families of children with special needs in a variety of ways, including financial help, supplying medical equipment, home accommodations and travel expenses for services.

The Molly Johnson Foundation desires to make a difference in the lives of these families in the best way possible. www.themollyjohnsonfoundation.org Safe Kids Safe Kids is a program that brings together health and safety experts, educators, corporations, foundations, governments and volunteers to educate and protect families. Safe Kids is a global network of organizations

Resource List 2018 dedicated to preventing accidental injury. Efforts are needed because as many as 90% of accidental injuries can be prevented. www.safekids.org Fayette County Coalition Kentucky Children’s Hospital, 800 Rose St., Lexington Ky., 40536 / (859) 323-1153 www.ukhealthcare.uky.edu/safekids Kentucky Coalition Kentucky Department of Health, 333 Waller Ave., Suite 242 , Lexington, Ky., 40504 / (859) 323-6194 Louisville and Jefferson County Coalition Norton Children’s Hospital, 315 E. Broadway, Louisville, Ky., 40202 / (502) 629-7335 TASH Disability Advocacy Worldwide (202) 540-9020 An international association of people with disabilities, family members, other advocates and professionals working for a society in which inclusion of all people in all aspects of society is the norm. www.tash.org Kentucky Chapter Located in Louisville Leslie Lederer (502) 239-4805 / www.tash.org/chapters/kentucky-tash/ Tourette Syndrome Association Lexington Support Group (606) 225-0946 Louisville Support Group (502) 235-0704 www.tsa-usa.org United Way Bluegrass 100 Midland Ave., Suite 300 Lexington, Ky., 40508 211 Information Line / (859) 233-4460 / www.uwbg.org Kentucky P.O. Box 4653, Louisville, Ky., 40204 334 E. Broadway, Suite 308, Louisville, Ky., 40204 (502) 589-6897 / www.uwky.org Metro P.O. Box 4488, Louisville, Ky., 40204 (502) 583-2821 / Fax (502) 292-5673 Fights for the education, health, housing and financial stability of every person. www.metrounitedway.org WHAS Crusade for Children 520 West Chestnut St., Louisville, Ky., 40202 (502) 582-7706 The WHAS Crusade for Children, established in 1954, raises money for agencies, schools and hospitals to better the lives of children with special needs. The Crusade Advisory Panel, an independent board of interdenominational ministers, decides how donations are distributed each year. www.whascrusade.org

STATE RESOURCES Brain Injury Acquired Brain Injury (ABI) Waiver 275 E. Main St. 6W-B, Frankfort, Ky., 40621

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Are We Missing Resources?

ur goal at Exceptional Family Magazine is to provide a comprehensive, statewide list of resources for folks with disabilities. Since we first published this magazine in 2009, each year we have updated and expanded our list of resources many times.

Help us continue to make this Resource Directory as accurate and thorough as possible. If you know of resources in the state or in your part of Kentucky that need to be included, please let us know.

Thanks for your assistance and we look forward to hearing from you.

To add to this Resource Directory, simply contact Editor John Lynch by phone (859) 223-1765 or email at john@lexingtonfamily.com. n (502) 564-5198 / Toll Free (866) 878-2626 This program is designed to provide intensive services and support to adults with acquired brain injuries as they work to re-enter community life. dmsweb@ky.gov www.chfs.ky.gov/dms/Acquired+Brain+Injury Traumatic Brain Injury (TBI) Trust Fund 275 E. Main St. 3E-E, Frankfort, Ky., 40601 (502) 564-6930 / toniaawells@ky.gov This program offers flexible, funding and support for people with traumatic brain injuries. The fund supports supplemental community based efforts to meet the special needs of individuals with brain injury. www.chfs.ky.gov/dail/braintrust Cabinet for Health and Family Services Commission for Children with Special Health Care Needs The Commission for Children with Special Health Care Needs has received a grant from the federal Health Resources and Services Administration to create Family to Family Health Information Centers throughout the commission offices. The centers will be staffed by mentors who are parents of children with special needs and will provide support to families of individuals with special needs.

Parents and caregivers have the opportunity to connect with another parent or caregiver with a similar situation or special health care need. www.chfs.ky.gov/ccshcn Regional Offices: Central office / Louisville 310 Whittington Parkway, Louisville, Ky., 40222 (502) 429-4430 / Toll Free (800) 232-1160 Serving Bullitt, Carroll, Gallatin, Henry, Jefferson, Oldham, Owen, Shelby, Spencer, Trimble counties and statewide.

Barbourville 110 Johnson Lane, Barbourville, Ky., 40906 (606) 546-5109 / (800) 348-4279 Serving Bell, Clay, Harlan, Jackson, Laurel, Rockcastle, Knox and Whitley counties.

Bowling Green

2040 Louisville Road, Bowling Green, Ky., 42101 (270) 746-7816 / (800) 843-5877 Serving Allen, Barren, Butler, Christian, Edmonson, Hart, Logan, Metcalfe, Monroe, Simpson, Todd and Warren counties.

Elizabethtown 580 Westport Road, Elizabethtown, Ky., 42701 (270) 766-5370 / (800) 995-6982 Serving Breckinridge, Grayson, Hardin, Larue, Marion, Meade, Nelson and Washington counties.

Hazard 103 Town and Country Lane, Suite M, Hazard, Ky., 41701 (606) 435-6167 / (800) 378-3357 Serving Breathitt, Knott, Lee, Leslie, Letcher, Owsley, Perry and Wolfe counties.

Lexington 333 Waller Ave., Suite 300, Lexington, Ky., 40504 (859) 252-3170 / (800) 817-3874 Serving Anderson, Bourbon, Boone, Boyle, Clark, Estill, Fayette, Franklin, Garrard, Grant, Harrison, Jessamine, Kenton, Lincoln, Madison, Mercer, Nicholas, Powell, Scott, and Woodford counties.

Morehead 214 W. First St., Morehead, Ky., 40351 (606) 783-8610 / (800) 928-3049 Serving Bath, Boyd, Bracken, Campbell, Carter, Elliot, Fleming, Floyd, Greenup, Lawrence, Lewis, Magoffin, Mason, Menifee, Morgan, Montgomery, Pendleton, Robertson and Rowan counties.

Owensboro 1600 Breckenridge St., Suite 1200, Owensboro, Ky., 42303 / (270) 687-7038 (877) 687-7038 Serving Daviess, Hancock, Henderson, Hopkins, McLean, Muhlenber, Ohio, Union and Webster counties.

Paducah 400 Park Ave., Bldg. D, Paducah, Ky., 42001 (270) 443-3651 / (800) 443-3651 Serving Ballard, Caldwell, Calloway, Carlisle, Crittenden, Fulton, Graves, Hickman, Livingston, Lyon, Marshall, McCracken, and Trigg counties.

Prestonsburg

2018 Exceptional Family KY

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Resource List 2018 5000 Ky. Route 321, Prestonsburg, Ky., 41653 (606) 889-1761/ (800) 594-7058 Serving Floyd, Johnson, Magoffin, Martin, Pike counties.

Somerset Professional Plaza, 401 Bogle St., Suite 104, Somerset, Ky., 42503 (606) 677-4120 (800) 525-4279 Serving Adair, Casey, Clinton, Cumberland, Green, McCreary, Pulaski, Russell, Taylor and Wayne counties.

Family to Family Health Information Centers Western Region Located at the offices of the Commission for Children with Special Health Care Needs, Family to Family HICs are family-run centers that assist families of children and youth with special health care needs and the professionals who serve them. The goal is to help keep children healthy by promoting regular medical care. F2F HICs help families make more informed choices by providing support, information, resources and training. F2F HICs promote access to community based, self-directed services that are available to children with special needs.

Louisville 310 Whittington Parkway Suite 200, Louisville, Ky. 40222 / (502) 429-4430 Sondra Gilbert Sondra.GIlbert@ky.gov / (270) 852-5533 Eastern Region (Including Louisville) Debbie Gilbert DebbieA.Gilbert@ky.gov / (502) 429-4430 - Ext. 2069 www.fv-ncfpp.org/index.php/f2fhic/contactf2fhic/?stateId=ky Hart-Supported Living Program (844) 689-6620 The Hart-Supported Living program is for Kentuckians with disabilities to request grants so they can live in, contribute to and participate in their communities. Any Kentuckian with a disability recognized under the Americans with Disabilities Act (ADA) is eligible to apply for a HartSupported Living grant. www.chfs.ky.gov/dail/hartsupportedliving Home and Community-Based Waiver (HCB) (502) 564-5560 The Home and Community-Based Waiver program provides Medicaid coverage to eligible persons who are aged or disabled and would otherwise require nursing facility level of care. Services include but are not limited to the following: assessment and reassessment, case management, homemaker services, personal care services, respite care, minor home adaptations, attendant care and adult day health care. www.chfs.ky.gov/dms/hcb Kentucky ADA Office 501 High St., Frankfort, Ky., 40601 (502) 564-1835 The State Office of the Americans with Disabilities Act provides technical assistance, consultations and training for state government employees.

ADA Coordinator: Donna Shelton www.personnel.ky.gov/Pages/ada.aspx Other Kentuckians should contact the Southeast ADA

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Center at 1419 Mayson St. NE, Atlanta, Ga., 30324 (800) 949-4232 / www.adasoutheast.org Kentucky Assistive Technology Loan Corp.

275 East Main St., Mail Drop 2 E-K, Frankfort, Ky. 40621 (877) 675-0195 The Kentucky Assistive Technology Loan Corporation (KATLC) offers low interest loans for qualified applicants with disabilities for assistive technology. Working with its lending partner, Fifth Third Bank, KATLC can provide loans for modified vehicles, hearing aids, adapted computers, mobility devices, augmentative communication devices or any other type of equipment or home modification that will improve the quality of life or increase the independence of Kentuckians with disabilities. www.katlc.ky.gov Kentucky Cabinet for Workforce Development Connecting Kentuckians to employment, workforce information, education and training. www.kcc.ky.gov Kentucky Children Insurance Program (K-CHIP) (877) 524-4718 / chfs.kchip@ky.gov K-Chip’s mission is to provide free health insurance to low income, uninsured children in Kentucky. The K-CHIP staff understands that access to health care is important and that preventive care is a large part of health care. www.kidshealth.ky.gov/en Kentucky Coalition Against Domestic Violence 111 Darby Shire Circle, Frankfort, Ky., 40601 (502) 209-5382 In addition to providing a safe, secure environment for victims/survivors and their children, programs now also offer a variety of support services to residents and non-­residents including legal/court advocacy, case management, safety planning, support groups, individual counseling, housing assistance, job search and children’s groups. / www.kcadv.org Kentucky Commission on the Deaf and Hard of Hearing 632 Versailles Road, Frankfort, Ky., 40601 (502) 573-2604 (V/TTY) / (800) 372-2907 (V/TTY, in Kentucky only) / kcdhh@mail.state.ky.us https://www.kcdhh.ky.gov/ Kentucky Community Mental Health Centers Publicly-funded community services are provided for Kentuckians who have problems with mental health, developmental and intellectual disabilities, or substance abuse, through Kentucky’s 14 regional Boards for Mental Health or Individuals with an Intellectual Disability (Regional MHID Boards). Regional MHID Boards are private, nonprofit organizations established by KRS Chapter 210 (see Related Links) which serve residents of a designated multicounty region. www.dbhdid.ky.gov/cmhc/centers.aspx Regional Offices: Adanta MH / MR Board 259 Parkers Mill Road, Somerset, Ky., 42501 (606) 679-4782 Serving Adair, Casey, Clinton, Cumberland, Green,

McCreary, Pulaski, Russell, Taylor, Wayne counties. www.adanta.org Bluegrass 1351 Newtown Pike, Lexington, Ky., 40511 (859) 253-1686 / (859) 272-7483 24-hour help line (800) 928-8000 Serving Anderson, Bourbon, Boyle, Clark, Estill, Fayette, Garrard, Harrison, Jessamine, Lincoln, Madison, Mercer, Nicholas, Powell, Scott, Woodford www.bluegrass.org Centerstone Kentucky 101 W. Muhammad Ali Blvd., Louisville, Ky., 40202 (502) 589-8600 Serving Bullitt, Henry, Jefferson, Oldham, Shelby, Spencer, Trimble www.centerstoneky.org Communicare, Inc. 107 Cranes Roost Court, Elizabethtown, Ky., 42701 (270) 765-2605 Serving Breckinridge, Grayson, Hardin, Larue, Marion, Meade, Nelson, Washington counties. www.communicare.org Comprehend, Inc. 611 Forest Ave., Maysville, Ky., 41056 (606) 564-4016 Serving Bracken, Fleming, Lewis, Mason, Robertson counties. www.comprehendinc.org Cumberland River Comprehensive Care 1203 American Greeting Card Road, P.O. Box 568 Corbin, Ky., 40702 / (606) 528-7010 Serving Bell, Clay, Harlan, Jackson, Knox, Laurel, Rockcastle, Whitley counties. www.crbhky.org Four Rivers Behavioral Health 425 Broadway, Suite 201, Paducah, Ky., 42001 (270) 442-7121 / 24-hour Line (800) 592-3980 Serving Ballard, Calloway, Carlisle, Gallatin, Graves, Hickman, Livingston, McCracken and Marshall counties. www.4rbh.org Ky. River Community Care P.O. Box 794. 178 Community Way, Jackson, Ky., 41339 (606) 666-7591 Serving Breathitt, Knott, Lee, Leslie, Letcher, Owsley, Perry, Wolfe counties. krccnet.com Lifeskills 380 Suwanee Trail St., P.O. Box 6499, Bowling Green, Ky. 42102-6499 / (270) 901-5000 Serving Allen, Barren, Butler, Edmonson, Hart, Logan, Metcalfe, Monroe, Simpson, Warren counties. www.lifeskills.com Mountain Comprehensive Care Center 104 S. Front Ave., Prestonsburg, Ky., 41653 (606) 886-8572 Serving Floyd, Johnson, Magoffin, Martin, Pike counties. www.mtcomp.org NorthKey Community Care 502 Farrell Drive, P.O. Box 2680, Covington, Ky., 41011 (859) 578-3200 / Toll Free (877) 331-3292 Serving Boone, Campbell, Carroll, Gallatin, Grant, Kenton, Owen and Pendleton. www.northkey.org

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2018 Exceptional Family KY

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Resource List 2018 Pathways, Inc. P.O. Box 790. 1212 Bath Ave., 8th floor, Ashland, Ky., 41101/ (606) 329-8588 ext. 4078 www.pathways-ky.org Serving Bath, Boyd, Carter, Elliott, Greenup, Lawrence, Menifee, Montgomery, Morgan, Rowan counties.

Pennyroyal MH / MR Board 3999 Fort Campbell Blvd., Hopkinsville, Ky., 4220 (270) 886-2205 Serving Caldwell, Christian, Crittenden, Hopkins, Lyon, Muhlenberg, Todd, Trigg counties. www.pennyroyalcenter.org River Valley Behavioral Health, Inc. 1100 Walnut St., P.O. Box 1637, Owensboro, Ky., 42301 (270) 689 6500 Serving Davies, Hancock, Henderson, McLean, Ohio, Union, Webster counties. www.rvbh.com Kentucky Department for Behavioral Health, Developmental and Intellectual Disabilities 275 E. Main St., Frankfort, Ky., 40621 (502) 564-4527 / (502) 564-7700 The department oversees services in Kentucky to people with intellectual and other developmental disabilities, mental health and substance use disorders. www.dbhdid.ky.gov/kdbhdid Kentucky First Steps State Lead Agency 275 E. Main St., HS2W-C, Frankfort, Ky., 40621 (877) 417-8377 First Steps is a statewide intervention system that provides services to children with developmental disabilities from birth to age 3 and their families. Administered by the Department for Public Health in the Cabinet for Health and Family Services, First Steps offers comprehensive services through community agencies and service disciplines.

Children who participate in early intervention have significant improvement in development and learning.

Helping to decrease the problems early in a child’s development can reduce or prevent costly educational programs in the future. www.chfs.ky.gov/dph/firstSteps/How+to+Contact+Local+ Point+of+Entry+Offices Reginal Offices: Barren River District Point of Entry P.O. Box 6499, 380 Suwannee Trail, Bowling Green, Ky., 42103 (270) 901-5749 / (800) 643-6233 Counties served: Allen, Barren, Butler, Edmonson, Hart, Logan, Metcalfe, Monroe, Simpson, Warren Big Sandy District Point of Entry 104 South Front Ave., Prestonsburg, Ky., 41653 (606) 886-4417 / (800) 230-6011 Counties served: Floyd, Johnson, Magoffin, Martin, Pike Bluegrass District Point of Entry 343 Waller Ave., Suite 201, Lexington, Ky., 40504 (859) 271-9448 / (800) 454-2764 Counties served: Anderson, Bourbon, Boyle, Clark, Estill, Fayette, Franklin, Garrard, Harrison, Jessamine, Lincoln, Madison, Mercer, Nicholas, Powell, Scott, Woodford Buffalo Trace District Point of Entry 611 Forest Ave., Maysville, Ky., 41056 (606) 564-3919 / (800) 335-4249

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Counties served: Bracken, Fleming, Lewis, Mason, Robertson Cumberland Valley District Point of Entry P.O. Box 568, Corbin, Ky., 40702 (606) 523-0229 / (800) 509-9559 Counties served: Bell, Clay, Harlan, Jackson, Knox, Laurel, Rockcastle, Whitley.

FIVCO District Point of Entry 5850 U.S. 60, Box 11 Summit Plaza, Ashland, Ky., 41102 (606) 929-9155 / (800) 650-1329 Counties served: Boyd, Carter, Elliott, Greenup, Lawrence Gateway District Point of Entry P.O. Box 290, Owingsville, Ky., 40360 (606) 674-3204 / (800) 942-4358 Counties served: Bath, Menifee, Montgomery, Morgan, Rowan Green River District Point of Entry 1501 Breckenridge St., Owensboro, Ky., 42301 (270) 852-2905 / (888) 686-1414 Counties served: Daviess, Hancock, Henderson, McLean, Ohio, Union, Webster Kentuckiana District Point of Entry 312 Whittington Parkway, Suite 020, Louisville, Ky., 40222 (502) 429-1249 / (800) 422-0087 Counties served: Bullitt, Henry, Jefferson, Oldham, Shelby, Spencer, Trimble Kentucky River District Point of Entry 115 Rockwood Lane, Hazard, Ky., 41701 (606) 439-1325 / (800) 328-1767 Counties served: Breathitt, Knott, Lee, Leslie, Letcher, Owsley, Perry, Wolfe Lake Cumberland District Point of Entry 259 Parkers Mill Road, Somerset, Ky., 42501 (606) 678-2821 / (800) 378-2821 Counties served: Adair, Casey, Clinton, Cumberland, Green, McCreary, Pulaski, Russell, Taylor, Wayne Lincoln Trail District Point of Entry 108 New Glendale Road, P.O. Box 2609, Elizabethtown, Ky., 42702 / (270) 737-5921 / (800) 678-1879 Counties served: Breckinridge, Grayson, Hardin, Larue, Marion, Meade, Nelson, Washington Northern Kentucky District Point of Entry North Key: 718 Columbia St., Newport, Ky., 41071 (859) 308-5963 Pennyrile District Point of Entry 400A Hammond Plaza, Hopkinsville, Ky., 42240 (270) 886-5186 / (877) 473-7766 Counties served: Caldwell, Christian, Crittenden, Hopkins, Lyon, Muhlenberg, Todd, Trigg Purchase District Point of Entry 425 Broadway, Suite 204, Paducah, Ky., 42001 (270) 442-6223 / (800) 648-6599 Counties served: Ballard, Carlisle, Calloway, Fulton, Graves, Hickman, Livingston, Marshall, McCracken.

St. Elizabeth: Community Outreach Building 4900 Houston Road, Florence, Ky., 41042 (859) 655-1195 / (888) 300-8866 Counties served: Boone, Campbell, Carroll, Gallatin, Grant, Kenton, Owen, Pendleton Kentucky IMPACT Program 275 E. Main St., 4W-G, Frankfort Ky., 40621 (502) 564-4456

Kentucky IMPACT is a statewide program that coordinates services for children with severe emotional disabilities and their families. IMPACT serves children and youth of all ages.

Kentucky Office for the Blind 8412 Westport Road, Louisville, Ky., 40242 (502) 429-4460 / www.blind.ky.gov The Kentucky Office of Vocational Rehabilitation 275 E. Main St., Mail Stop 2E-K, Frankfort, Ky., 40621 (502) 564-4440 The Kentucky Office of Vocational Rehabilitation (OVR) assists Kentuckians with disabilities to achieve suitable employment and independence. The organization recognizes and respects the contribution of all individuals as a necessary and vital part of a productive society. www.ovr.ky.gov Office of Vocational Rehabilitation Central Office Cabinet for Human Resources Building Regional Offices: Ashland (606) 920-2338 Bluegrass (859) 246-2537 / (888) 211-7276 Bowling Green (270) 746-7489 / (800) 443-6055 (800) 246-6193 (TTY) Carl D. Perkins Center (800) 443-2187 Covington (859) 292-6513 / (866) 380-3450 Danville (859) 239-7885 / (800) 795-8481 Elizabethtown (270) 766-5121 / (866) 883-0001 Florence (859) 371-9450 / (877) 371-9451 Lexington (859) 246-2185 / (859) 246-2540 (877) 246-2185 Louisville (502) 595-4173 / (800) 456-3334 Middletown (502) 426-0145 / (866) 304-1958 Owensboro (270) 687-7308 / (800) 241-5821 (TTY) (888) 640-2811 West Kentucky (270) 575-7304 West Liberty (606) 743-7978 / (606) 743-7551 (800) 440-2530 Whitesburg (606) 633-2568 Kentucky Transitions (Money Follows the Person Demonstration Grant) 275 East Main St., 6 W-B, Frankfort, Ky., 40621 (502) 564-0330 Using funding from the Money Follows the Person Demonstration Grant, the Department for Medicaid Services assists eligible individuals to transition from institutional settings back into the community.

Kentucky Department for Medicaid Services Division of Community Alternatives www.chfs.ky.gov/dms/archive+mfp+grant+information.htm Medicaid Waiver Provider Directory The Provider Directory is maintained by the Division of Developmental & Intellectual Disabilities. Contact information for provider agencies certified to provide SCL/ Michelle P. Medicaid waiver services may be accessed in this interactive map. http://www.dbhdid.ky.gov/ProviderDirectory/ ProviderDirectory.aspx Michelle P. Waiver Division of Community Alternatives

Resource List 2018 275 E. Main St. 6 W-B, Frankfort, Ky., 40621 (855) 459-6328 / (502) 564-1647 / (502) 564-4527 A Medicaid program that helps people live in the community or return to the community after living in an institution. The Michelle P. Waiver is for anyone with an intellectual or a developmental disability who is eligible to receive services at an Intermediate Care Facility. www.chfs.ky.gov/dms/mpw Pathways to Careers and Special Programs 300 Sower Blvd., Frankfort, Ky., 40601 (502) 564-4770 Donnalie Stratton, Program Consultant https://education.ky.gov Personal Care Attendant Program Department for Aging and Independent Living 275 E. Main St., 3E-E, Frankfort, Ky., 40621 (502) 564-6930 Ext 3477 Attendant services are provided for people 18 and older with functional loss of two or more limbs and who have the ability to hire and supervise an attendant. Services include assistance with personal care, housekeeping, shopping, travel, self-­care procedures, meal preparation, and other daily activities. www.chfs.ky.gov/dail/pcap Social Security Administration (800) 772-1213 / www.ssa.gov Regional Offices: Ashland 1405 Greenup Ave. Suite 132, Ashland, Ky., 41101 Bowling Green 2724 Chandler Drive, Bowling Green, Ky., 42104 Campbellsville 101 Hiestand Farm Road, Campbellsville, Ky., 42718 Corbin 159 Future Drive, Corbin, Ky., 40701 Danville 103 Belinda Blvd., Danville, Ky., 40422 Elizabethtown 591 Westport Road, Elizabethtown, Ky., 42701 Florence 7 Youell St., Florence, Ky., 41042 Frankfort 140 Flynn Ave., Frankfort, Ky., 40601 Hazard 122 Reynolds Lane, Hazard, Ky., 41701 Hopkinsville 1650 Marie Drive, Hopkinsville, Ky., 42240 Jackson 850 KY-15 N., Jackson, Ky., 41339 Lexington 2241 Buena Vista Road, Suite 110, Lexington, Ky., 40505 Louisville 10503 Timberwood Circle, Suite 50, Louisville, Ky., 40223 Madisonville 4431 Hanson Road, Madisonville, Ky., 42431 Maysville 509 Market Place Drive, Maysville, Ky., 41056 Owensboro 4532 Lucky Strike Loop, Owensboro, Ky., 42303 Paducah 125 Brett Chase Road, Paducah, Ky., 42003

Prestonsburg 1897 Ky. Route 321, Prestonsburg, Ky., 41653 Richmond 1060 Gibson Bay Drive, Richmond, Ky., 40475 Somerset 3975 US-27, Somerset, Ky., 42501 Supports for Community Living Waiver Branch 275 E. Main Street 4CF, Frankfort, Ky., 40621 (502) 564-7700 The Supports for Community Living (SCL) Waiver Branch of the Division of Developmental and Intellectual Disabilities (DDID) provides staff support for and oversight of the Supports for Community Living waiver program. The SCL waiver program is a home- and community-based program funded by the Kentucky Department for Medicaid Services and administered by DDID. http://dbhdid.ky.gov/ddid/scl.aspx

ADOPTION AND FOSTERING

Adoption Support for Kentucky UK College of Social Work 1500 Bull Lea Road Ste. 194, Lexington Ky., 40511 (859) 257-7361 / adoptky@uky.edu Adoption Support for Kentucky (ASK) is a statewide program that specializes in the utilization of support groups to offer pre- and post-adoptive support and services to both foster and adoptive parents. ASK provides the opportunity to share resources, suggestions, frustrations and successes with those who share this unique experience. ASK strives to prevent pre-adoption disruption and post-adoption dissolution through peer-led support and training. There is no cost and any and all are welcome. www.uky.edu/trc/ask The Bair Foundation 2393 Alumni Drive, Suite 205, Lexington, Ky., 40517 (859) 519-3273 Bair Foundation is a therapeutic Foster Care agency in the process of getting the certification for caring for medically complex children. Bair Foundation foster care families are specially trained to care for children with medical and behavioral needs. Bair Foundation provides trauma-informed care for all children, helping them face challenging behaviors and provides them with stable environments while focusing on the child’s strengths. www.bair.org Benchmark Family Services Therapeutic Foster Care, Kentucky Administrative Office 118 Dennis Drive, Lexington, Ky., 40503 (859) 899-9515 Provides quality out-of-home placements for youth in need by working with referring agencies to guarantee the support, treatment and care they deserve. Serves children with emotional, mental and physical disabilities along with youth who have been severely neglected or abused.

Therapeutic services include training of foster families.

Benchmark Family Services has offices in Berea, Bowling

Green, Columbia, Corbin, Elizabethtown, Florence, Hazard, Lexington, Louisville, Madisonville, Morehead, Owensboro, Owenton, Paducah, Prestonsburg, and Somerset. www.benchmarkfamilyservices.org Children’s Home of Cincinnati 5050 Madison Road, Cincinnati, Ohio, 45227 (513) 272-2800 / (513) 808-9632 The Children’s Home of Cincinnati is a private, nonprofit social service agency that improves the lives of children and their families through services in four areas: adoption, early childhood, education and mental health.

The Home serves children of all ages and their families, including adoptive children, new parents needing support and guidance, children with special education needs, and children with mental health diagnoses. www.thechildrenshomecinti.org Key Assets Kentucky 961 Beasley St., Suite 170, Lexington, Ky., 40509 (859) 226-5022 Key Assets provides support for specialized foster parents who care for children with developmental delays or autism. www.keyassetskentucky.com Special Needs Adoption Program 275 East Main St., 3C-E, Frankfort, Ky., 40621 (800) 928-4303 DCBS/Adoption Service www.chfs.ky.gov/snap

THE ARTS All Abilities Drama Camp Jessamine Early Learning Village 851 Wilmore Road, Nicholasville, Ky., 40356 aadramacamp@gmail.com Embracing the gifts of all campers through the arts by celebrating difference, skills, personalities and abilities. www.allabilitiescamp.blogspot.com Allegro Dance Project (715) 252-6137 Based in Lexington, Allegro Dance Project is a non-profit contemporary dance company specializing in Inclusive dance outreach for children with Down Syndrome, Autism Spectrum Disorder and other specific needs. www.allegrodanceproject.org Latitude Artist Community 734 National Avenue Suite 110, Lexington 40502 (859) 806-0195 Latitude is an art studio that serves all people, with an emphasis on those who are considered to have a disability. The multimodal activities, workshops, and community outreach events form a framework that encourages us to recognize our own life’s narrative, and to then choose ways in which we may contribute to the wellbeing of our community. www.latitude-arts.com

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Resource List 2018 Lexington Children’s Theatre 418 W. Short St., Lexington, Ky., 40507 (859) 254-4546 LCT is committed to creating an environment where everyone feels welcome to enjoy the magic of theatre.

Available are sensory friendly performances, designed to be a safe environment where young people with sensory sensitivities or disabilities, first-time theatre goers, young children, and their friends and family are free to speak, respond and move around the seating area in reaction to the story. ASL interpretation and audio description are also available. www.lctonstage.org/tickets/access-at-lct/ Music for Life: Music Therapy and Music Education Patricia Guobis, M. M., MT-BC (502) 767-8308 The SHINE House 402 North Main Street, Somerset, Ky., 42501 (606) 416-5380 The SHINE House is a nonprofit community arts center whose goal is to provide instruction in a variety of visual arts forms in a creative educational space developed with inclusion in mind. www.theshinehouse.com VSA Arts of Kentucky P.O. Box 3320, Bowling Green, Ky., 42102 (270) 904-7019 Nonprofit organization dedicated to providing inclusive arts and education programs for children, youth, and adults with disabilities, in addition to professional development for artists and teachers in schools and communities statewide.

Offers an under-served population equal opportunity to explore the arts in a way that is fully accessible. Through participatory involvement with trained professionals and volunteers, people with disabilities learn new creative and social skills that open doors to new opportunities www.vsartsky.org

ASSISTIVE TECHNOLOGY Carl D. Perkins Vocational Training Center 5659 Main St., Thelma, Ky., 41260 (606) 788-7080 The mission of the Carl D. Perkins Vocational Training Center is that persons will achieve sustainable competitive integrated employment, maximize independence, and yet gain self-respect through the provision of comprehensive services. Consumers may live on our campus in dormitory housing or can commute to the Perkins Center each day they are scheduled for classes and/or therapy. www.cdpvtc.ky.gov Enabling Technologies of Kentuckiana (enTECH) at Spalding University 812 S. Second St., Louisville, Ky., 40203 (502) 992-2448 / www.entech.spalding.edu

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HDI Center for Assistive Technology Services 2358 Nicholasville Road, Suite 180 Lexington, Ky., 40503 (859) 218-7979 (CATS) is a non-profit, grassroots organization that assists individuals who have disabilities, their families and service providers in connecting with various technologies and services that provide the gateway to greater independence, productivity and quality of life. CATS is a member of the Alliance for Technology Access, The Eastern Regional Center for the Kentucky Assistive Technology Service (KATS) Network. www.hdi.uky.edu/HDICATS / www.facebook.com/HDICATS

Redwood Assistive Technology Center 71 Orphanage Road, Ft. Mitchell, Ky., 41017 (800) 728-9807 / www.redwoodnky.org

KATS (Ky. Assistive Technology Service Network Coordinating Center) 8412 Westport Road, Louisville, Ky., 40242 (800) 327-5287 / Info@katsnet.org The Kentucky Assistive Technology Locator is a free service of the KATS Network that connects Kentuckians to the AT devices they need to live independently. By registering for an account, you can borrow devices to try, find used devices for free or low-cost, sell used devices, give away devices or place want ads for devices you need. www.katsnet.org

The Kelly Autism Program Western Kentucky University Clinical Education Complex, 104 Alumni Ave. Bowling Green, Ky., 42101 / (270) 745-4KAP (4527) www.wku.edu/kellyautismprogram (Please see story on Page 17)

KATS Project CARAT (800) 327-5287 / info@projectCARAT.org A program of KATS, CARAT enables underserved individuals with disabilities in the Appalachian region of Kentucky by collecting, refurbishing and redistributing assistive technology (AT) and durable medical equipment (DME) through a collaborative network of partners. The goal of Project CARAT is to make Assistive Technology and Durable Medical Equipment more accessible to those who need it in rural Kentucky. In order to make this happen, Project CARAT is partnering with agencies across the state.

To request equipment or for donation information, call ProjectCARAT Hotline (800) 327-5287. www.katsnet.org/projectCARAT Kentucky Assistive Technology Loan Corporation 275 East Main St., / Mail Drop 2 E-K Frankfort, KY 40621 (877) 675-0195 The Kentucky Assistive Technology Loan Corporation (KATLC) offers low interest loans for qualified applicants with disabilities for assistive technology. Working with its lending partner, Fifth Third Bank, KATLC can provide loans for modified vehicles, hearing aids, adapted computers, mobility devices, augmentative communication devices or any other type of equipment or home modification that will improve the quality of life or increase the independence of Kentuckians with disabilities. www.katlc.ky.gov Kentucky Department of Education Exceptional Children 300 Sower Blvd., 5th Floor, Frankfort, Ky., 40601 (502) 564-4770 www.education.ky.gov/specialed/Pages/default.aspx Kentucky Assistive Technology Guidelines 8412 Westport Road, Louisville Ky., 40242 (800) 327-5287 www.katsnet.org/publications/aitis/index.html

Western Kentucky Assistive Technology Center Wendell Foster’s Campus 815 Triplett St., Owensboro, Ky. 42302 (270) 689-1738 / www.wkatc.org

AUTISM

Wendell Foster’s Kelly Autism Program 815 Triplett St. / P.O. Box 1668, Owensboro, Ky., 42303 (270) 683-4517 / www.wfcampus.org Autism Society of the Bluegrass P.O. Box 24212, Lexington, Ky., 40524-241 (859) 299-9000 / saraspragens@gmail.com Autism Society of the Bluegrass, an all-volunteer parent advocacy group, was established in 1991 and is a chapter of ASA. Its mission is to provide education, advocacy and support to families, educators and health providers affected

by ASD in the Bluegrass. www.asbg.org Autism Society of Greater Cincinnati P.O. Box 58385, Cincinnati, Ohio, 45258-0385 (513) 561-2300 ASGC works to promote awareness and education about autism. ASGC provides information packets, support groups for families and individuals, newsletters and public speakers. www.autismcincy.org Autism Society of Kentuckiana

P.O. Box 21895, Louisville, Ky., 40221-0895 Rebecca Thompson, Kentucky Resident Contact (502) 263-5708 / www.ask-lou.org Families for Effective Autism Treatment 1100 E. Market St., Louisville, Ky., 40206 (502) 596-1258 / www.featoflouisville.org Hopebridge 1300 E. New Circle Road, Suite 150, Lexington, Ky. 40505 / (859) 685-1019 5215 Commerce Crossings Drive, Louisville, Ky., 40229 (502) 251-7002 2427 Russellville Road Bowling Green, Ky., 42101 (270) 936-7472 Provides a full range of professional services in one location for a child with Autism Spectrum Disorder and other developmental delays. www.hopebridge.com Kentucky Autism Training Center at Kosair Charities

Resource List 2018 University of Louisville 1405 E. Burnett Ave., Louisville, Ky., 40217 (502) 852-4631 / 800-334-8635 ext. 852-4631 www.louisville.edu/education/kyautismtraining Lake Area Autism Families Support Group Michelle Schoremak (270) 978-0680 / laaf.msu@gmail.com

PACT: Police Autism Community Training (513) 394-1813 PACT is a non-profit program run by a sibling of an individual with autism aimed at educating and raising autism awareness within Kentucky’s law enforcement departments. PACT seeks to increase awareness and knowledge through a classroom session focused on improving miscommunication among law enforcement officials and individuals with autism. www.loveabigaila2.wixsite.com/pact Weisskopf Child Evaluation Center 571 South Floyd St., Suite 100, Louisville, Ky., 40202 (502) 588-0907 Provides center-based and outreach diagnostic evaluations and treatment to infants and children with, or at risk for, developmental disabilities, congenital anomalies, genetic disorders, autism, organic behavior disorders (ADHD) and learning disabilities, as well as genetic counseling to adults. www.louisville.edu/medschool/pediatrics/clinical/wcec

CAMPS AND RECREATIONAL ACTIVITIES Bowling Green Parks and Recreation Special Populations Division 225 E. Third Ave., Bowling Green, Ky., 42101 (270) 393-3484 Programs and services offered provide all individuals, regardless of their ability level, opportunities for recreation and leisure. People with and without disabilities participate side by side in an inclusive environment. Activities include Bowling Green Special Olympics (softball, basketball, flag football, bowling, cheerleading, swimming, and track and field), adapted sports (wheelchair basketball, wheelchair tennis and goalball), and social gatherings (holiday parties, movie nights, dances and more). www2.bgky.org/bgpr/specialpopulation.php/ Camp Discovery A three-day all female camp designed to teach women in wheelchairs physical fitness and form lasting relationships.

Sports such as wheelchair tennis, SCUBA diving and horseback riding as well as whole body wellness such as art therapy, nutrition classes, cooking and massage are all incorporated throughout the weekend. www.campdiscoveryco.com Camp Hendon 1640 Lyndon Farm Court, Suite 108, Louisville, Ky.,

40223 / (502) 272-2370 Camp Hendon is an all-volunteer camp for children (ages 8-17) with Type I diabetes. The camp provides two separate week-long residential camping sessions to empower children to take control of their journey with diabetes. / www.camphendon.org Cassidy’s Cause Therapeutic Riding Academy 6075 Clinton Road, Paducah, Ky., 42001 (270) 554-4040 / www.cassidyscause.org The Center for Courageous Kids 1501 Burnley Road, Scottsville, Ky.,42164 (270) 618-2900 / jobryan@courageouskids.org The Center for Courageous Kids (CCK) is a medical camp where children with disabilities or life-threatening illnesses will experience what a real camp is like, in a setting that is physically safe and medically sound. The camp offers children who are typically watching rather than participating, the opportunity to fully engage in camp activities that focus on their abilities. Illness specific summer camps for children (7-15) and illness specific family weekend retreats, free of charge. www.courageouskids.org Central Kentucky Riding for Hope P.O. Box 13155, Lexington, Ky., 40583 (859) 231-7066 / lauriston@ckrh.org Operated at the Kentucky Horse Park Under the guidance of trained teachers, volunteers and medical people, disabilities are challenged and new abilities are created. The program has proved successful in helping people with disabilities develop self-esteem, confidence, coordination and a sense of achievement while learning horsemanship and track riding principles. www.ckrh.org

Easter Seals Adaptive Recreation 2050 Versailles Road, Lexington, Ky., 40504 (859) 246-8816 / cindy.jacobelli@cardinalhill.org Promotes healthy and active lifestyles for people with physical disabilities through education, exposure to adaptive equipment and adaptive recreation experiences in the community. www.cardinalhill.org/programs/adaptive-recreation Kamp KESSA 758 Beechridge Road, Frankfort, Ky., 40601 502-376-4367 A non-profit resident camp serving populations who are at-risk and have special needs. Kamp KESSA provides adventure education and treatment programs utilizing horses and the wilderness. Cedar Fire Farms www.cedarfire.net Legacy All Sports 261 Ruccio Way, Lexington, Ky., 40503 (859) 977-8862 Carousel Kidz is a program to meet your child’s special needs with one-on-one gymnastics lessons. www.legacyallsports.com Lexington Parks and Recreation Therapeutic Recreation 545 N Upper Street, Lexington, Ky., 40508 (859) 288-2900 Therapeutic Recreation programs provide opportunities for individuals with disabilities to enjoy activities through recreation, leisure and play and to showcase their talents and abilities. Programs are designed to enhance the overall health, wellness and social needs of individuals with disabilities. A variety of recreation and sport opportunities are available such as adult fitness, adaptive

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Resource List 2018 aquatics, archery, Miracle League Baseball, cooking, summer camps, drama, hand drumming, art, day-trip outings, overnight excursions, bowling, horsemanship, dance class, special events, Zumba, yoga and more. www.lexingtonky.gov/tr Louisville Parks and Recreation Adaptive and Inclusive Recreation 1300 Heafer Road, Louisville, Ky., 40223 (502) 456-8148 Offers adaptive sports and recreation to people in Jefferson and outlying counties. Programs include the state’s only Paralympics Sports Club, plus health and wellness classes such as nutrition, yoga, and exercise and strength training clwasses. Sports offerings include wheelchair basketball, wheelchair tennis, bocce ball, pickle ball and wheelchair pickle ball, archery, adaptive golf, goal ball and beep baseball for people with low or no vision. Clinics are offered in track & field, wheelchair lacrosse, sled hockey and more. Louisville is also home to the state wheelchair basketball team, Louisville Spokes & Spires. / www.bestparksever.com LYSA’s TOPSoccer Program 404 Sporting Court, Lexington, Ky., 40503 (859) 223-5632 TOPSoccer (The Outreach Program for Soccer) is a community-based soccer program designed to meet the needs of athletes with physical, developmental, and/or intellectual disabilities. Player participation and development are key elements of the program.

TOPSoccer is designed to improve the overall fitness, self-esteem and social skills of your athlete. www.lysa.org/tops Special Olympics Kentucky 105 Lakeview Court, Frankfort, Ky., 40601 (502) 695-8222 / (800) 633-7403

Special Olympics is the world’s largest program of sports training and competition for children and adults with intellectual disabilities. www.soky.org Toyota Bluegrass Miracle League North Lexington YMCA / (859) 258-9622 A baseball program for youth and adults with special needs. The leagues play on a specially designed field located at Shillito Park in Lexington. The all-accessible field is the only one of its kind in Kentucky with leagues in both spring and fall. www.ymcacky.org/main/toyota-bluegrass-miracle-league/ www.facebook.com/Toyota Bluegrass Miracle League YMCA of Central Kentucky (859) 254-9622 / www.ymcaofcentralky.org

DOWN SYNDROME Down Syndrome Association of Central Kentucky 1050 Chinoe Road, Suite 204, Lexington, Ky., 40502 (859) 494-7809 DSACK exists to celebrate the Down syndrome community, support individuals with Down syndrome and their families, educate the Central Kentucky community and assist in local and national research efforts. DSACK celebrates that all people are beautiful, capable and loved.

Serves Central and Eastern Kentucky. www.dsack.org Down Syndrome Association of Greater Cincinnati 4623 Wesley Ave., Suite A, Cincinnati, Ohio, 45212 (513) 761-5400 By providing families with support, inspiration and information, the Association helps individuals with Down

syndrome achieve their maximum potential. Including individuals with Down syndrome in neighborhood schools, community activities and the business world benefits individuals and their respective communities. www.dsagc.com Green River Area Down Syndrome Association Owensboro and surrounding area P.O. Box 2031, Owensboro, Ky., 42302 (270) 681-5313 / info@gradsa.org GRADSA’s mission is to enable families enriched with Down syndrome connection to share resources, build friendships, and advocate together for the future of individuals with Down syndrome. www.gradsa.org Down Syndrome of Louisville 5001 South Hurstbourne Parkway Louisville, Ky., 40291 (502) 495 5088 Down Syndrome of Louisville is a non-profit organization founded in 1977 whose mission is to improve the lives of persons with Down syndrome and their families by providing support, information, education, and advocating for their rights and concerns, enabling individuals to reach their full potential. www.downsyndromeoflouisville.org Down Syndrome Association of South Central Kentucky PO Box 1611, Bowling Green, Ky., 42101 (270) 796-5002 / info@dssky.org www.dssky.org Down Syndrome Association of Western Kentucky P.O. Box 7366, Paducah, Ky., 42002-7366 (270) 559-9026 / upsandowns@dsawk.com DSAWK promotes public awareness and acceptance of individuals with Down syndrome by providing information, resources and support in our community.

Generally, meetings are on the 3rd Monday of the month at the Heartland Worship Center in Paducah. www.dsawk.com National Down Syndrome Congress (NDSC) (800) 232-6372 / (770) 604-9500 info@ndsccenter.org The NDSC provides up-to-date information on topics of interest to people with Down syndrome, family members, friends, professionals and interested others. The Center works to promote the availability of and accessibility to a full range of opportunities and/or resources that meet individual and family needs. www.ndsccenter.org National Down Syndrome Society (NDSS) (800) 221-4602 / info@ndss.org The mission of the National Down Syndrome Society is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome. www.ndss.org

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EDUCATION

The Council for Exceptional Children 2900 Crystal Drive, Suite 100 Arlington, Virginia, 22202-3557 (888) 232-7733 / TTY (866) 915-5000 The largest international professional organization dedicated to improving educational outcomes for individuals with exceptionalities, students with disabilities, and/or the gifted. www.cec.sped.org EKU Center for Student Accessibility 521 Lancaster Ave., Whitlock Building, Room 361 CPO 66, Richmond, Ky., 40475 (859) 622-2933 Provides equal access to University resources, coursework, programs and activities by serving qualified individuals, and advocating for equal access for all individuals who qualify. www.accessibility.eku.edu Kentucky Adult Education Council on Postsecondary Education 1024 Capital Center Drive, Suite 250 Frankfort, Ky., 40601 (502) 573-5114 V/TTY www.kyae.ky.gov Kentucky Department of Education: Division of Exceptional Services 300 Sower Blvd., 5th Floor, Frankfort, Ky., 40601 (502) 564-4970 Oversees funding, special education programs, data collection, personnel development, monitoring of school districts, curriculum development and more. www.education.ky.gov/specialed/excep/Pages/default. aspx Kentucky Education Rights Center, Inc 256 Abbey Road, Versailles, Ky., 40383 (859) 983-9222 / kerc@edrights.com Kentucky PTA 148 Consumer Lane, Frankfort Ky., 40601 or P.O. Box 654, Frankfort, Ky., 40602-0654 (502) 226-6607 / kentuckypta@bellsouth.net www.kypta.org Kentucky State Department of Education 300 Sower Blvd., Frankfort, Ky., 40601 Rebecca Blessing / (502) 564-4770 https://education.ky.gov Kentucky State University Disability Resource Center 400 E. Main St., Frankfort, Ky., 40601 (502) 597-5076 / diane.robinson@kysu.edu Room 220 of the Student Center or Room 429 of the Academic Services Building www.kysu.edu Morehead State University Disability Service

109J Enrollment Services Center, Morehead, Ky., 40351 (606) 783-5188 / e.day@moreheadstate.edu This office ensures that the university’s programs, activities, services and the campus itself are accessible to all students and visitors. www.moreheadstate.edu/disability Northern Kentucky University Office of Disability Services Student Union, Suite 303, Highland Heights, Ky., 41099 (859) 572-5401 NKU provides learner-centered assistance and resources to students with disabilities in their transition to Northern Kentucky University. www.disability.nku.edu Programs for Children with Disabilities 300 Sower Blvd., Frankfort, Ky., 40601 (502) 564-4970 Division of Extended Learning Office of Academic and Professional Development (Ages 3 through 5) https://education.ky.gov Public School Parent Resource Centers, Cabinet for Health and Family Services 275 E. Main St. Frankfort, Ky., 40621 (502) 564-4986 Nearly all public schools in the state have Parent Resource Centers, which are divided into 11 Regions. The mission is to remove nonacademic barriers to learning as a means to enhance student academic success. The Centers are also places where families of children with special needs can receive parent-to-parent counseling on special education issues and concerns. Families are welcome to visit and preview materials from the lending library, which has many books, videotapes and periodicals related to disability. The staff can connect parents to resources and support groups and also help with online research. www.chfs.ky.gov/dfrcvs/frysc/ Regional Offices: Region 1: Coordinator Teresa Dixon Counties Served: Ballard, Caldwell, Calloway, Carlisle, Christian, Crittenden, Graves, Fulton, Hickman, Hopkins, Livingston, Lyon, Marshall, McCracken, Muhlenberg, Todd, Trigg Region 2: Coordinator Dianne M. Arnett Counties Served: Butler, Daviess, Hancock, Henderson, Logan, McLean, Ohio, Simpson, Union, Warren, Webster Region 3: Coordinator Naela Imanyara Counties Served: Jefferson Region 4: Coordinator Betty Pennington Counties Served: Boone, Campbell, Carroll, Gallatin, Henry, Kenton, Oldham, Owen, Shelby, Trimble Region 5: Coordinator Paul Cookendorfer Counties Served: Anderson, Bourbon, Clark, Franklin, Grant, Harrison, Jessamine, Madison, Mercer, Nicholas, Pendleton, Scott, Woodford Region 6: Coordinator Barbara Pettus Counties Served: Bullitt, Boyle, Casey, Clinton, Cumberland, Garrard, Lincoln, Marion, McCreary, Nelson, Pulaski, Russell, Spencer, Taylor, Washington, Wayne Region 7: Coordinator Doug Jones Counties Served: Bath, Boyd, Bracken, Carter, Elliott,

Fleming, Greenup, Johnson, Lawrence, Lewis, Martin, Mason, Menifee, Montgomery, Morgan, Robertson, Rowan Region 8: Coordinator Teresa Combs Counties Served: Breathitt, Estill, Knott, Lee, Leslie, Letcher, Owsley, Perry, Powell, Magoffin, Wolfe Region 9: Coordinator Russell Jones Counties Served: Bell, Clay, Harlan, Jackson, Knox, Laurel, Rockcastle, Whitley Region 10: Coordinator Mary Jennings Counties Served: Fayette, Floyd, Pike Region 11: Coordinator Sherrie Baughn Martin Counties Served: Adair, Allen, Barren, Breckinridge, Edmonson, Grayson, Green, Hardin, Hart, Larue, Meade, Metcalfe, Monroe.

Charles L. Shedd Kentucky Association 4801 Sherburn Lane, LL1, Louisville, Ky. 40207 (502) 656-4453 / sheddtutoring@gmail.com The Shedd Program provides educational remediation through highly structured teaching methods and materials utilizing a multisensory approach and one-to-one instruction. www.sheddtutoring.org Special Needs Homeschooling A blog written by a mother with special needs children, the author provides resources she has found helpful in homeschool her children. www.specialneedshomeschooling.com University of Kentucky Disability Resource Center 725 Rose St. Multidisciplinary Science Building Suite 407, Lexington, Ky., 40536 (859) 257-2754 Resources for prospective and current students and parents. www.uky.edu/StudentAffairs/DisabilityResourceCenter University of Louisville Disability Resource Center 119 Stevenson Hall, Louisville, Ky., 40292 (502) 852-6938 / askdrc@louisville.edu UofL provides support for students with documented disabilities by promoting equal access to all programs and services www.louisville.edu/disability Western Kentucky University 1906 College Heights Blvd., Bowling Green, Ky., 42101 Student Accessibility Resource Center Downing Student Union, First Floor, 1074 (270) 745-5004 WKU coordinates services and accommodations for students with documented disabilities. www.wku.edu/sarc

EPILEPSY Epilepsy Council of Greater Cincinnati 895 Central Ave., Suite 550, Cincinnati, Ohio, 45202 (513) 721-2905 / (877) 804-2241

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Resource List 2018 efgc@cincinnatiepilepsy.org www.epilepsy-ohio.org Epilepsy Foundation of Kentuckiana 982 Eastern Parkway, Louisville, Ky., 40217 (502) 637-4440 / (866) 275-1078 www.efky.org

LEARNING DIFFERENCES Dyslexia Association of the Pennyrile 583 A Noel Ave., Hopkinsville, Ky., 42241 (270) 885-5804 / www.hopkinsvilledyslexia.org The International Dyslexia Assn. - Ky. Branch P.O. Box 2011, Lexington, Ky., 40588 (859) 948-0013 / www.idakentucky.org LD Online The world’s leading website on learning disabilities and ADHD. www.ldonline.org/ldresources/local_org/kentucky Learning Disabilities Assn. of Kentucky 2210 Goldsmith Lane, Suite 118, Louisville, Ky., 40218 (502) 473-1256 / (877) 587-1256 This comprehensive mental health professional program includes the “co-morbid” disorders often found with individuals with learning disabilities, including Anxiety, Depression, Obsessive Compulsive Disorder, Anger Control/ Bipolar Disorder, and ADHD. www.LDAofky.org Ohio Valley Branch of the International Dyslexia Association 317 East Fifth St., Cincinnati, Ohio, 45202 (513) 651-4747 A non-profit, scientific and educational organization dedicated to the study and treatment of dyslexia. This Branch was formed to increase public awareness of dyslexia in the Southern Ohio, Southeast Indiana, Kentucky and Huntington, West Virginia areas. www.ohv.dyslexiaida.org Progressive Educational Program, Inc. Cress Certified 212 Venture Way, Somerset, Ky., 42503 (606) 677-2514 Dyslexia Tester. Specializing in tutoring children with Dyslexia www.progressiveeducationalprogram.com Wilson Pediatric Therapy 401 Lewis Hargett Circle, Suite 120, Lexington, Ky., 40503 (859) 475-4305 / (859) 899-7323 Working with children with dyslexia and other learning differences. www.wilsonpediatric.com

LEGAL & FUTURE’S PLANNING Attorney Karen L. Perch 2333 Alexandria Drive, Lexington, Ky., 40504 (859) 224-0513 Karen Perch and her staff are dedicated to helping clients with their legal matters regarding Wills, Living Wills, Powers of Attorney, Trusts, including Special Needs Trusts, Qualifying Income Trusts (Miller Trusts) and Family Trusts and Estate Administration. www.perchlaw.com Attorney Robert McClelland, LLM, CELA McClelland & Associates, PLLC, 1795 Alysheba Way Suite 2102, Lexington, Ky., 40509 (859) 543-0061 Robert L. McClelland is a certified elder law attorney, special needs trustee and guardian with Elder Law Lexington the firm of McClelland & Associates, PLLC. He is a member of the Special Needs Alliance, a national alliance of special needs attorneys who focus their practice on benefits planning and caring for those with family members who have special needs www.elderlawlexington.com Children’s Law Center Covington Office: 1002 Russell St., Covington, Ky., 41011 / (859) 431-3313 / info@childrenslawky.org Lexington Office: c/o Imani Family Life Center 215 W. Short St., Suite 205, Lexington, Ky., 40507 (859) 431-3313 / rbdiloreto@childrenslawky.org Provides free legal services for children with educational disabilities, and performs research and policy work, training and education in this area. www.childrenslawky.org Court Appointed Special Advocates for Children (CASA) Kentucky CASA Network 1640 Lyndon Farm Court Suite 108, Louisville, Ky., 40223 (502) 238-2154 CASA volunteers are everyday citizens appointed by judges to advocate for the safety and well-being of abused and neglected children. Last year in Kentucky, more than 800 CASA volunteers advocated for the best interest of nearly 3,000 children in Kentucky. CASA has 20 offices throughout the state. To locate one in your area, visit the web site below. www.kentuckycasanetwork.org Kentucky Division of Protection and Permanency 275 E. Main St., 3E-A, Frankfort, Ky., 40621 (502) 564-6852 / Fax (502) 564-4653 If you believe a child is being abused, neglected or is dependent, call the Protection and Permanency office in your county or the Toll Free Child Protection Hot Line.

1-877-KYSAFE1 or 1-877-597-2331. www.chfs.ky.gov/dcbs/dpp Kentucky Office of Victims Advocacy 1024 Capital Center Drive, Suite 200, Frankfort, Ky., 40601 / (502) 696-5312

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The Office of Victims Advocacy works to ensure crime victims are treated with respect and dignity as their case proceeds through the criminal justice system. www.ag.ky.gov/about/branches/OVA Kentucky Protection & Advocacy 5 Millcreek Park, Frankfort, Ky., 40601 (800) 372-2988 / (502) 564-2967 The mission is to protect and promote the rights of Kentuckians with disabilities through legally based individual and systemic advocacy and education. Staff includes professional advocates and attorneys. www.kypa.net Life Plan of Kentucky, Inc. 2333 Alexandria Drive, Lexington, Ky., 40504 (859) 514-6073 Life Plan is a pooled special needs trust serving people with disabilities and their families in Kentucky who have countable resources in excess of $2000.00 and need to maintain their eligibility for Supplemental Security Income (SSI) or Medicaid. People can open an account with Life Plan where the funds can be professionally managed and then requests can be made for expenses that improve the quality of the person’s life. Life Plan provides Trustee services for both individuals with disabilities as well as family members who wish to plan for the future. www.lifeplanofky.org

MEDICAL AND THERAPY SERVICE PROVIDERS Associates in Pediatric Therapy 90 Howard Drive, Shelbyville, Ky.,40065 Louisville Area: (502) 633-1007 Lexington Area: (859) 899-2022 Indiana Area: (812) 542-2771 Bowling Green Area: (270) 467-7700 APT’s unique appeal is that it offers a family approach with multiple pediatric services including Occupational Therapy, Speech Therapy, Physical Therapy, Developmental Intervention, Audiology and Mental Health Services to the patient and family in a team approach. APT strives to provide therapy in a variety of locations that are appealing to the patient and family www.kidtherapy.org Brain Injury Alliance of Kentucky 7321 New LaGrange Road, Suite 100, Louisville, Ky., 40222 / (502) 493-0609 BIAK is committed to serving those affected by brain injury though advocacy, education, prevention, outreach, service and support. www.biak.us Cardinal Hill Rehabilitation Hospital 2050 Versailles Road, Lexington, Ky., 40504 (859) 254-5701 Outpatient Services (859) 367-7125

Resource List 2018

Home Care (859) 367-7148 www.cardinalhill.org Cincinnati Children’s Hospital Center for Infants and Children with Special Needs Cincinnati Children’s Hospital Medical Center MLC 7009 3333 Burnet Ave., Cincinnati, Ohio, 45229 (513) 636-3000 / (800) 344-2462 TTY (513) 636-4900 www.cincinnatichildrens.org Crohn’s & Colitis Foundation of America Kentucky Chapter P.O. Box 573, Prospect, Ky., 40059 (877) 283-7513 / Kentucky@ccfa.org www.ccfa.org/chapters/kentucky/ Early Periodic Screening Diagnostic and Treatment Special Services (EPSDT) Dept. of Medicaid Services, Children’s Health Services (800) 635-2570 / TTY (800) 775-0296 The EPSDT Screening Program provides routine physicals or well child check-ups for Medicaid eligible children at certain specified ages. EPSDT can also provide speech/language, physical and/or occupation therapy, and specialized durable medical equipment for children who qualify and need those services. www.chfs.ky.gov/dms/epsdt Easter Seals Cardinal Hill 2050 Versailles Road, Lexington, Ky., 40504 (859) 367-7217 Creative Beginnings Child Development Center (859) 246-8815 Cardinal Hill Adult Day Health / (859) 367-7178 HorseAbility / (859) 367-7217 Promotes healthy and active lifestyles for people with

physical disabilities through education, exposure to adaptive equipment and adaptive recreation experiences in the community. / www.cardinalhill.org Frazier Rehab Institute 220 Abraham Flexner Way, Louisville, Ky., 40202 (502) 582-7400 Known for world-class care in comprehensive acute rehab, Frazier Rehab Institute provides extensive therapy across a number of specialties for inpatient and outpatient rehab needs. www.kentuckyonehealth.org/rehabilitationcarefrazier Health Point Family Care, Covington 1401 Madison Ave., Covington, Ky., 41011 (859) 655-6100 HealthPoint Family Care’s vision is a community where everyone has access to quality, affordable health care.

The mission is to be the best provider of health services through compassion and innovation. www.healthpointfc.org/location/covington/ Horn and Associates in Rehabilitation 2412 Greatstone Point, Lexington, Ky., 40504 4127 Todds Road, Lexington, Ky. 40509 (859) 224-4081 HRA offers assessments and intervention from a multidisciplinary team including physical therapy, occupational therapy, speech-language pathology, psychology, developmental intervention, social work and case management. HRA provides independent evaluation and intervention services. www.horntherapy.com Kentucky Children’s Hospital University of Kentucky, 800 Rose St., Lexington, Ky., 40536 / (859) 257-1000 / (800) 333-8874

Established in 1957, UK HealthCare consists of the medical, nursing, health sciences, public health, dental and pharmacy patient care activities of the University of Kentucky, and in several off-site locations. www.ukhealthcare.uky.edu/KCH Kids Center Pediatric Therapies 9810 Bluegrass Parkway, Louisville, Ky., 40299 (502) 584-9781 Since 1959, the Kids Center for Pediatric Therapies has been helping children with special needs. Each week the Center sees over 300 children facing challenges such as autism, Down syndrome, spina bifida, and cerebral palsy. www.kidscenterky.org The Kidz Club Erlanger: 527 Watson Road, Erlanger, Ky., 41018 (859) 727-0700 Lexington: 2200 Regency Road, Lexington Ky., 40503 (859) 224-0799 Louisville: 7140 Preston Highway, Louisville, Ky., 40219 (502) 368-9318 Louisville: 225 N. 25th St., Louisville, Ky., 40212 (502) 365-2426 The Kidz Club is a prescribed pediatric extended care facility that provides skilled nursing care for children who are medically fragile in a day care setting. Kidz Club children range from having highly complex medical conditions to kids that simply need to be monitored or have medication delivered. The Kidz Club provides educational enrichment, therapy follow-through, field trips and activities in a fun and social setting. Transportation can be provided.

Medicaid and private insurance accepted. There are no costs to the child or their family. www.thekidzclub.com

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Resource List 2018 Kraska & Associates, Inc. 437 Lewis Hargett Circle, Suite 120, Lexington, Ky., 40503 / (859) 219-0956 Private practice providing occupational and speech therapy services. Family-centered approach. Areas of specialty include sensory integration, sensory processing disorder, fine motor/handwriting, dyspraxia, autism, Asperger’s, articulation, phonological disorders and reading programs.

Marshall Pediatric Therapy 109 Wind Haven Drive, Suite 100, Nicholasville, Ky., 40356 / (859) 224-2273 Offers occupational and speech therapy for Lexington and surrounding counties. The practice accepts EPSDT, most private insurance plans, participates with Kentucky First Steps, and offers payment plans and provides needbased scholarships from ages birth to 21. www.mptcares.com Multiple Sclerosis Society Kentucky-Southeast Indiana Chapter 1201 Story Ave., Suite 200, Louisville, Ky., 40206 (502) 451-0014 www.nationalmssociety.org www.nationalmssociety.org/Chapters/KYW/About-thisChapter/Staff NorthKey Community Care 502 Farrell Drive, P.O. Box 2680 722 Scott Blvd, Covington, Ky., 41011 (859) 578-3200 / 877-331-3292 NCC is paving the way to a community healthy in mind and spirit in the Cincinnati and Northern Kentucky areas with a comprehensive continuum of mental health, developmental disability and substance abuse care. www.northkey.org Passport Health Plan 5100 Commerce Crossings Drive, Louisville, Ky., 40229 (800) 578-0603 EST / TDD (800) 691-5566 Passport Health Plan is a Medicaid managed care plan that has been coordinating health services to qualified members since 1997. Passport is community-based and provider-sponsored, and the only non-profit Medicaid health plan available to members in Kentucky. The mission is to “improve the health and quality of life of our members,” which Passport follows every day through exceptional customer service, a large provider network, and case and disease management programs. www.passporthealthplan.com Ronald McDonald House Charities of the Bluegrass 1300 Sports Center Drive, Lexington, Ky., 40502 (859) 268-0757 This charity exists to create and support programs that directly improve the health and well-being of children and to strengthen families by keeping them together in times of medical need. www.rmhclexington.com Shriners Hospital for Children 110 Conn Terrace, Lexington, Ky., 40508

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(859) 266-2101 Shriners Hospitals for Children has a mission to provide the highest quality care to children with orthopaedic or neuromusculoskeletal disorders and diseases within a compassionate, family-centered and collaborative care environment. www.shrinershospitalsforchildren.org

(859) 948-9471 / tim@360mentalhealth.com Dr. Tim Houchin is one of only approximately 200 physicians triple- board certified in child/adolescent psychiatry, general psychiatry and forensic psychiatry. He believes in a holistic, 360-degree approach to evaluating and treating both children and adults. www.360mentalhealth.com

SKY Pediatric Dentistry Dr. Mandy Ashley, DMD, MsEd, MS 727 US-31 W. Bypass, Suite 101, Bowling Green, Ky., 42101 / (270) 715-5437 Dentistry for children and teens with special needs. www.skypediatricdentistry.com

Bluegrass (Bluegrass.org) 1351 Newtown Pike, Lexington, Ky., 40511 (859) 253-1686 / (859) 272-7483 24-hour help line (800) 928-8000 Bluegrass celebrates more than 50 years of service to 17 Central Kentucky counties. The mission of the non-profit organization is to help individuals and families live their best life. Bluegrass provides services for community members in the areas of intellectual and developmental disability, mental health and substance use. www.bluegrass.org

Square One Specialists in Child and Adolescent Development 6440 Dutchmans Parkway, Louisville, Ky., 40205 (502) 896-2606 / info@squareonemd.com Comprehensive medical, psychological, psychiatric, educational, and speech-language evaluations are offered to help understand differences that impact children’s and adolescents’ development, behaviors and emotions. www.squareonemd.com Robert A. Underwood, Ph.D. & Byron White, Psy.D: Edelson and Associates, PSC 7511 New La Grange Road, Louisville, Ky., 40222 (502) 423-1151 Neuropsychological, ADHD, Learning Disability, Autism and Psychological Disorder Evaluations. www.edelsonandassociates.info University of Louisville Norton Children’s Hospital 231 E. Chestnut St., Louisville, Ky., 40402 (502) 629-6000 Norton Children’s Hospital is a 253-bed teaching facility and serves as a referral center for central and western Kentucky, and southern Indiana. The hospital is also the primary pediatric teaching hospital for the University of Louisville health sciences program. Each year there are approximately 8,000 admissions, 50,000 Emergency Department visits and 10,500 outpatient clinic visits. www.kosairchildrenshospital.com Verbal Behavior Consulting, Inc. PO Box 216, Lexington, Ky., 40588 (859) 899-9200 Established in 2007, VBC provides treatment solutions to families, schools and agencies regarding techniques and procedures guided by the science of Applied Behavior Analysis and Verbal Behavior literature. Providing services through Board Certified Behavior Analysts, VBC offers experience, training and expertise in working with children with language delays and problem behavior. www.vbcaba.com

MENTAL HEALTH PROVIDERS 360 Mental Health Services 1517 Nicholasville Road, Suite 302, Lexington, Ky., 40515

Creative Psychiatry P.L.L.C. Dr. F. Allen Walker P.O. Box 23509, Louisville, Ky., 40223 (502) 384-ADHD (2343) / drwalker@louisvilleadhd.com www.louisvilleadhd.com The Kentucky Association of Regional Programs 152 West Zandale Drive, Suite 201, Lexington, Ky., 40503 (859) 272-6700 A state association whose members are 11 of the 14 community mental health centers in Kentucky. KARP can connect citizens to their local community mental health center for information about services and support. www.sites.google.com/site/kentuckycmhcs Mental Health America (MHA) MHA is the nation’s leading community-based nonprofit dedicated to addressing the needs of those living with mental illness and to promoting the overall mental health of all Americans. The work is driven by a commitment to promote mental health as a critical part of overall wellness, including prevention services for all; early identification and intervention for those at risk; integrated care, services and supports for those who need it; with recovery as the goal.

Regional Offices: Mental Health America of Kentucky 216 E. Reynolds Road, Suite F, Lexington, Ky., 40517 (859) 684-7778 / mhaky@kih.net / www.mhaky.org Mental Health America of Northern Kentucky & Southwest Ohio 912 Scott St., Covington, Ky., 41011 (877) 361-4518 / (859) 431-1077 / www.mhanky.org NAMI (National Alliance for the Mentally Ill) NAMI is the nation’s largest grassroots mental health organization dedicated to building better lives for the millions of Americans affected by mental illness https://www.nami.org Regional Offices: Kentucky (606) 677-4066 / (800) 257-5081 namiky@bellsouth.net / www.ky.nami.org Bowling Green Deborah Weed / (270) 796-2606 or (270) 796-2600

Resource List 2018 Wc2600@outlook.com Buffalo Trace Sharon Darnell / (606) 584-2716 Sharon@namibuffalotrace.org Cumberland River Wayne Bullock / (606) 256-9250 nami.mtvernon@crccc.org Danville Lauren Clements / (859) 412-1886 lauren.clements89@gmail.com Green River Jeff Cox / namigreenriver@gmail.com (270) 619-2461 Hazard Jamie Goins / (606) 216-8066 Namihazard@yahoo.com Heartland Gary Barr / (502) 471-4064 gary.barr@geappliances.com Lexington Anita Hartsfield / (859) 245-4442 Achart2@email.uky.edu Phill Gunning / (859) 272-7891 pgunning@namilex.org Louisville Nancy Brooks / (502) 588-2008 Nancy.brooks@namilouisville,org Madison County Olivia Hays / (859) 986-6301 oliviahays@catholichealth.net Madisonville Beverly Jones / (270) 664-2101 Bjones.nami@att.net Morehead Carol Mauriello / (606) 356-9194 camauriello@moreheadstate.edu Mountain Region Mary Prater / (606) 349-3115 mary.prater@mtcomp.org Murray Brenda Benson / (270) 748-6133 brenda.benson@murraystate.edu Northern Kentucky Dorothy Best / (513) 205-4118 dbest@namiky.org Owensboro Marla Payne / (270) 302-3113 namiowensboro@gmail.com Paducah Jennifer Lewis / (270) 443-3448 namipaducah@yahoo.com Somerset Lori Ollo / (270) 210-7852 lori3ollo@gmail.com Winchester Brenda Harrington / (859) 749-3702 bebe1@bellsouth.net

MISCELLANEOUS Alter UR Ego P.O. Box 56, Farmers, Ky., 40319 hello@alterurego.co Adaptable clothing for people in wheelchairs to be

fashionable and functional. For kids, teens and plus sizes. www.alterurego.co

(859) 255-3444 www.cclc.com/center/ky/woodland-early-learning-center

NuMotion Bowling Green 1017 Shive Lane, Suite E, Bowling Green, Ky., 42103 (270) 904-4934 Lexington 973 Beasley St., Suite 110, Lexington, Ky., 40509 (859) 225-3624 Louisville 11380 Bluegrass Parkway, Jeffersontown, Ky., 40299 (502) 266-9061 With a strong local focus, NuMotion aims to be the most responsive and innovative complex wheelchair company with which to do business. www.numotion.com

The dePaul School 1925 Duker Ave., Louisville, Ky., 40205 (502) 459-6131 www.depaulschool.org

Superior Van & Mobility 1180 E. New Circle Road, Lexington, Ky., 40505 (859) 253-1832 1506 Lakeshore Court, Louisville, Ky., 40223 (502) 447-8267 Superior Van & Mobility provides mobility solutions for the consumer and commercial transportation industry. Member of the National Mobility Equipment Dealers Association and a participant in NMEDAs Quality Assurance Program, which is recognition reserved for the highest quality mobility dealers. www.superiorvan.com

SCHOOLS

Academy for Individual Excellence 3101 Bluebird Lane, Louisville, Ky., 40299 (502) 267-6187 / www.aiexcellence.com Child Development Center of the Bluegrass 290 Alumni Drive, Lexington, Ky., 40503 (859) 218-2322 Four-Star rated preschool for children with and without disabilities. Services provided include assessment, evaluations, and speech, physical and occupational therapy. www.cdcbg.org Christian Academy of Louisville Providence School, 3110 Rock Creek Drive, Louisville, Ky., 40207 / 502-244-3225 ext 1020 CAL serves children preschool through fifth grade with Down syndrome within an inclusive environment to promote language, social and spiritual goals. Students also receive small group instruction to address individual goals. Curriculum and structure are designed to promote spiritual, cognitive, adaptive, language, motor and self-help skills. A Family Service Plan/IFSP is written with each family specific to the needs of their child. This program works in relationship with Down Syndrome of Louisville. School is adding sixth grade in 2019-2020. www.caschools.us/down-syndrome-providence-school Creative Learning Center Woodland Early Learning Center 575 Woodland Ave., Lexington, Ky., 40508

Growing Together Preschool, Inc. 599 Lima Drive, Lexington, Ky., 40511 (859) 255-4056 Has offered nurturing early child care and education services to children with and without disabilities and other special needs in an inclusive environment since 1982.

Additional services include developmental screenings and assessment; physical, occupational and speech therapy; and behavior consultations. Teachers have experience working with children of varying abilities and advantages, and integrating recommended therapeutic practices into the classroom. GTP is accredited by the National Association for the Education of Young Children, rated 5 STARS through KY ALL STARS and offers a Kentucky Proud farm to preschool menu. www.gtplex.org The Kidz Club Erlanger: 527 Watson Road, Erlanger, Ky., 41018 (859) 727-0700 Lexington: 2200 Regency Road, Lexington Ky., 40503 (859) 224-0799 Louisville: 7140 Preston Highway, Louisville, Ky., 40219 (502) 368-9318 Louisville: 225 N. 25th St., Louisville, Ky., 40212 (502) 365-2426 The Kidz Club is a prescribed pediatric extended care facility that provides skilled nursing care for children who are medically fragile in a day care setting. Kidz Club children range from having highly complex medical conditions to kids that simply need to be monitored or have medication delivered. The Kidz Club provides educational enrichment, therapy follow-through, field trips and activities in a fun and social setting. Transportation can be provided. Medicaid and private insurance accepted.

There are no costs to the child or their family. www.thekidzclub.com KORE Academy Porter Memorial Church, 4300 Nicholasville Road, Lexington, Ky., 40515 / (859) 971-7129 School for children with learning differences: Grades 3-12. / www.koreacademy.org The Langsford Center 9402 Towne Square Ave., Cincinnati, Ohio, 45242 (513) 531-7400 2520 Bardstown Road, Louisville, Ky., 40205 (502) 473-7000 2805 N. Hurstbourne Parkway, Louisville, Ky., 40223 (502) 245-1706 / www.langsfordcenter.com The Lexington School’s The Learning Center 1050 Lane Allen Road, Lexington, Ky., 40504 (859) 278-0501

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Resource List 2018 The Learning Center provides a unique and essential service to children with language-based differences by offering an alternative to traditional classrooms. By creating a teaching environment that eliminates the major obstacles to learning, students are able to close the gap between achievement and their potential. Teacher-student ratios of 1:4 allow for individualized instruction in the core areas of greatest need. In addition, low studentteacher ratios will be maintained in other subjects such as science, social studies, computer skills, specials and social skills. www.thelexingtonschool.org Meredith Dunn School 3023 Melbourne Ave., Louisville, Ky., 40220 (502) 456-5819 www.meredithdunnschool.org Pitt Academy 7515 Westport Road, Louisville, Ky., 40219 (502) 966-6979 www.pitt.com The Provisions School & Family Counseling Center 128 Dennis Drive, Lexington, Ky., 40503 (859) 396-0644 www.theprovision.org The Sphinx Academy 1591 Winchester Road, Suite 101 Lexington, Ky., 40505 (859) 309-6372 New and innovative secondary school for grades 7-12. Combines Montessori, homeschooling and special education. www.sphinxacdemy.com Sproutlings Pediatric Day Care & Preschool Kosair Charities Center 3800 Tom Larimore Lane, Masonic Home, Ky., 40041 (502) 753-8222 Sproutlings is a dual-licensed program and has spaces for medically fragile children and children in traditional day care or preschool. Staffed by Registered Nurses, Certified Nursing Assistants, teachers and teacher aides, and caring for a wide variety of medical conditions. Medicaid and private insurance is accepted www.SproutlingsDayCare.com Stewart Home School 4200 Lawrenceburg Road, Frankfort, Ky., 40601 (502) 227-4821 Discover a residential school that offers lifelong learning, a postsecondary experience, the opportunity to attain a GED, vocational training and countless social and recreational activities among friends from all around the world. www.stewarthome.com Summit Academy of Louisville 11508 Main St., Louisville, Ky., 40243 (502) 244-7090 www.summit-academy.org

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SERVICE DOGS 4 Paws for Ability University of Kentucky UK4PAWS@gmail.com www.facebook.com/4PawsatUK Kentucky Working K-9 Academy 4856 Lilac Road, Leitchfield, Ky., 42754 (270) 259-3647 Service Dogs for the Disabled www.kentuckyservicedogacademy.com Paws With Purpose P.O. Box 5458, Louisville, Ky., 40255 (502) 689-0804 / Info@PawsWithPurpose.org pawswithpurpose.org Wildcat Service Dogs University of Kentucky Emma Rhodes, emma.rhodes@uky.edu www.wildcatservicedogs.org

SERVICE PROVIDERS (COMMUNITY AND RESIDENTIAL) For a complete list of Service Providers licensed in Kentucky please see: http://www.dbhdid.ky.gov/ProviderDirectory/ ProviderDirectory.aspx ALMOSTfamily/CAREtenders Kentucky Home Health Offices Multiple locations www.almostfamily.com Cedar Lake 9505 Williamsburg Plaza, Suite 200, Louisville, Ky., 40222 (502) 495-4946 Cedar Lake is committed to providing the highest quality of services to the people it supports. To demonstrate its commitment to the development of a compassionate and capable workforce, Cedar Lake has launched a career development program with ongoing educational opportunities to further sharpen people’s skills. In doing so, Cedar Lake employees develop a heightened sensitivity – or compassion – for the people they support and a clear understanding of how they can best support these individuals to live a life filled with abundant possibilities. www.cedarlake.org New Perceptions 1 Sperti Road, Edgewood, Ky., 41017 (859) 344-9322 Non-profit organization has been dedicated to enriching lives of those with intellectual/developmental disabilities since 1952. newperceptions.org

New Vista Behavioral Healthcare 144 Richie Lane, Somerset, Ky., 42503 (606) 772-1120 This non-profit organization is dedicated to assisting individuals achieve their full potential through personcentered, community and integrated services. Supports for Community Living provider offers day training programming, supported employment and residential supports within staffed residences as well as family home providers. www.newvista.org Pathways P.O. Box 790, Ashland, Ky., 41105 (606) 329-8588 / (800) 562-8909 Pathways assists in obtaining individual and familydetermined supports for persons who have developmental disabilities or intellectual disabilities. Goals are to serve and enhance opportunities for making choices that promote inclusion as a valued citizen in all meaningful phases of community life. www.pathways-ky.org R.E.A.C.H of Louisville 501 Park Ave., Louisville, Ky., 40208 (502) 585-1911 REACH provides an exemplary SCL program with support for individuals and families through highly qualified support staff, which includes psychologists, social workers, crisis support managers, recreational specialists and special educators www.reachoflouisville.com Redwood 71 Orphanage Road, Ft. Mitchell, Ky., 41017 (859) 331-0880 A non-profit organization funded by United Way, Redwood guides children and adults with multiple and severe disabilities to achieve independence and reach their highest potential throughout their lives, by providing enriching educational, therapeutic and vocational services. www.redwoodnky.org ResCare 9901 Linn Station Road, Louisville, Ky., 40223 (800) 866-0860 Provides supports to people with developmental, cognitive and intellectual disabilities. Services include group homes, supported living, in-home, Telecare, foster or companion care and vocational and habilitation. www.rescare.com STRIDE 150 Maryland Ave., Winchester, Ky., 40391 (859) 744-0370 STRIDE serves individuals who have a learning or developmental disability and are at least 16 years of age.

Daily programming includes cooking classes, dances, Special Olympic activities, daily living skills classes and much more in an effort to improve the quality of life for the participants. All of participants are expected to live up to their responsibilities at home, work and in the STRIDE program. Moyto: “We have an obligation to expect the best out of our participants and try to help them to continue to

Resource List 2018 improve their skills.” www.strideky.org Zoom Group 1904 Embassy Square Blvd., Louisville, Ky.,40299 (502) 581-0658 Zoom Group has been providing supports for individuals with disabilities for over 30 years. Zoom Group’s mission is to EMPOWER, EDUCATE AND EMPLOY people of all abilities. www.zoomgroup.org

SPEECH, LANGUAGE AND HEARING Heuser Hearing Institute 111-117 E. Kentucky St., Louisville, Ky., 40203 (502) 584-3573 Heuser Hearing Institute (HHI) is a multi-specialty nonprofit campus promoting the needs of children and adults with disorders of hearing and balance. The organization has served Louisville and many of the surrounding Kentucky and Indiana communities since 1948. www.thehearinginstitute.org Kentucky Association of the Deaf 303 South Second St., Danville, Ky., 40423-463 The Kentucky Association of the Deaf, Inc. (KAD) is organized exclusively by and for the deaf community, for charitable and educational purposes. The specific purpose of the Corporation is for mutual assistance and encouragement of deaf people and to secure moral, intellectual and social improvement of their educational and vocational opportunities. Also, KAD promotes measures to improve conditions and standing in society at large of deaf persons in Kentucky. www.kydeaf.org Kentucky School for the Deaf 303 South Second St., Danville, Ky., 40422 (859) 239-7017 Ensures that children and youth who are deaf and hard of hearing have educational opportunities to develop their potential to become educated, life-long learners and productive citizens. www.ksd.k12.ky.us Kentucky Commission on the Deaf and Hard of Hearing 632 Versailles Road, Frankfort, Ky., 40601 (502) 573-2604 (V/TTY) / (800) 372-2907 (V/TTY, in Kentucky only) / kcdhh@mail.state.ky.us https://www.kcdhh.ky.gov/ Kentucky Hands and Voices (888) 398-5030 Hands & Voices is a non-profit, parent-driven national organization dedicated to supporting families of children who are deaf or hard of hearing. The organization is nonbiased about communication methodologies and believes

that families can make the best choices for their child if they have access to good information and support. The group consists of parents of ASL signers, cued speech users, kids with cochlear implants or total communicators. www.kyhandsandvoices.org Kentucky Speech-Language-Hearing Association 838 E. High St., Suite 263, Lexington, Ky., 40502 (800) 837-2446 / khsaoffice@khsa.info The mission is to enhance the provision of quality services to persons with communication disorders and their families. KSHA provides broad-based education opportunities, public awareness and policy development initiatives, and by supporting professionals in speechlanguage pathology and audiology by promoting the highest standards for service providers. www.ksha.info Lexington Hearing and Speech Center 350 Henry Clay Blvd., Lexington, Ky., 40502 (859) 268-4545 Provides diagnostic, therapeutic and educational services for individuals with hearing, speech and language impairments. www.lhscky.org St. Rita School for the Deaf 1720 Glendale Milford Road, Cincinnati, Ohio, 45215 (513) 771-7600 / www.srsdeaf.org

SPINA BIFIDA

Cardinal Hill Center for Outpatient Services 2050 Versailles Road, Lexington, Ky., 40504 (859) 367-7125 / www.cardinalhill.org Kids Center Pediatric Therapies 9810 Bluegrass Parkway, Louisville, Ky., 40299 (502) 584-9781 Since 1959, the Kids Center for Pediatric Therapies has been helping children with special needs. Each week the Center sees over 300 children facing challenges such as autism, Down syndrome, spina bifida, and cerebral palsy. www.kidscenterky.org Spina Bifida Association of Kentucky Kosair Charities 982 Eastern Parkway, Box 18 Louisville, Ky., 40217 (502) 637-7363 / sbak@sbak.org The Spina Bifida Association of Kentucky is a resource center for children, their families and adults affected by Spina Bifida. SBAK educates parents how to be the best advocate for their child, and helps children and adults overcome physical, cognitive and social challenges to become successful and independent. The mission is to promote the prevention of Spina Bifida and enhance the lives of all those affected. www.sbak.org Shriners Hospital for Children 110 Conn Terrace, Lexington, Ky., 40508 (859) 268-5798

VISION Family Eyecare Associates & Children’s Vision and Learning Center, Dr. Rick Graebe 105 Crossfield Dr, Versailles, Ky., 40383 (859) 879-3665 / (855) 686-2020 In addition to general optometric services, Family Eyecare offers unique programs such as Vision Therapy for children experiencing difficulty with reading and/or underachievement at school. Children in these programs average more than a 3-year improvement in performance in 10 to 15 weeks. www.myfamilyvision.com Kentucky Office for the Blind 8412 Westport Road, Louisville, Ky., 40242 (502) 429-4460 / www.blind.ky.gov Kentucky School for the Blind Division of the Kentucky Department of Education Office of Special Instructional Services 1867 Frankfort Ave., Louisville, Ky., 40206 (502) 897-1583 A K-12 public school serving Kentucky students who are blind and visually impaired. The school offers a Short Course program (1-12 weeks) of specialized instruction available to students throughout the school year. Summer school programs are offered in June and July. www.ksb.k12.ky.us Office for the Blind 275 E. Main St., Frankfort, Ky., 40601 (800) 321-6668 / (502) 564-4754 http://kcc.ky.gov/Office-for-the-Blind/Pages/default.aspx Silver Circles, Inc. 2396 New Shepherdsville Road, Bardstown, Ky., 40004 (502) 264 7886 Catherine C. Barnes, Director & Irlen Diagnostician The Irlen Method uses colored overlays and precision tinted filters, worn as glasses, to reduce or eliminate perceptual difficulties and light sensitivity. www.silvercirclesinc.com Visually Impaired Preschool Service (VIPS) Greater Louisville 1906 Goldsmith Lane, Louisville, Ky., 40218 (502) 636-3207 / (888) 636-8477 Central Kentucky 350 Henry Clay Blvd., Lexington, Ky., 40502 (859) 276-0335 / (888-254-8477) The mission of Visually Impaired Preschool Services, Inc. is to offer appropriate services to infants, toddlers and preschoolers who are visually impaired or blind and to their families; and to maximize each child’s development potential through direct services, advocacy and community education. VIPS staff includes certified teachers who specialize in early childhood education, visual impairment, O&M, and special education. Several staff members are also parents of visually impaired children. www.vips.org n

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Associates in Pediatric Therapy Advancing Patients to Their Next Therapeutic Level

Speech Therapy, Occupational Therapy, Physical Therapy & Mental Health Offices located in Louisville, Lexington, Southern Indiana & the surrounding areas.

502.633.1007 or 859.899.2022

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