Exceptional Family Magazine Summer/Fall 2019 by Lexington Family Magazine

SUMMER/FALL

2019 INDEPENDENCE

INTEGRATION

INCLUSION

Arthur Campbell Jr Disability Rights Activist From Louisville, Noted for His Street Advocacy, Is a Living Legend Worthy of a Monument

Dynamic Duo Brack Duncan Helped His Friend, Josh Banks, Become a Member of a Fraternity at UK

4 Meet Mark Rothel

7 Reader Survey

14 Capital Case

6 Lunch & Learn

8 YES! Group

18 Resource List

A big man with an even bigger smile thrives as a member of the CCDD Council.

CCDD and UK’s HDI host monthly informational sessions online and in person.

Complete a short survey and earn a chance to win $250.

Young Empowered Self-Advocates! group has expanded its reach and membership.

10 New Caucus

State legislators form Engage & Empower Caucus to advocate for disability issues.

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For additional free copies, Call (859) 223-1765 or Email john@lexingtonfamily.com

Editor..............................John Lynch

of Lexington Family Magazine

Graphic Artist........................Nick Farr 2

of Lexington Family Magazine www.lexingtonfamily.com

CCDD groups twice this year made their presence felt in Washington, D.C.

From autism to vision issues, statewide list provides the information you need.

Advocacy Works

¿Hablas Espanol? For the Spanish version of the magazine, visit www.lexingtonfamily.com

2019 “Exceptional Family Magazine” is published by the Commonwealth Council on Developmental Disabilities. 656 Chamberlin Ave., Suite C, Frankfort, Kentucky 40601 (502) 367-5332 • (502) 564-7841 • www.CCDD.KY.gov

Bring Your

LUNCH & LEARN ATTEND IN PERSON OR PARTICIPATE ONLINE (ASL interpreter available at each session) Noon - 1 p.m. EST - Pre-registration is required • TUESDAY, SEPTEMBER 24, 2019 Letting Go: Creating Successful Transition to Adulthood Presenter: Stella Beard - Assistant Director of KYSPIN LINK: http://bit.ly/LLSept19

LUNCH & LEARN

• TUESDAY, OCTOBER 15, 2019 Employment First: Making it Happen in Kentucky Presenter: Katie Wolf Whaley - Director of the Kentucky Supported Employment Training Project at UK’s Human Development Institute LINK: http://bit.ly/LLOct19 • TUESDAY, NOVEMBER 12, 2019 Putting Supported Decision Making to Work in Kentucky Presenter: Laura Butler - Disability Policy Administrator at UK’s Human Development Institute LINK: http://bit.ly/LLNov19

IN PERSON AT UK Coldstream Campus Human Development Institute Training Room 1525 Bull Lea Road Lexington, KY 40511

Meet CCDD Member

Advocacy Works

Mark Rothel ‘He Brightens Up Your Day’ The only three programs – Social Security Disbowler (his high game is 226), he plays thing bigability Insurance, a veteran’s pension baseball in the Toyota Miracle League ger than derived from his father’s military and is a big-time churchgoer, someCCDD Council career, and the Michelle P. Waiver. times attending services on Sunday at member Mark Proud of his extraordinary memory, three different churches. Rothel, it seems, is Rothel has a head for dates. His father “I love to sing at church,” he said, his smile. John, was born Aug. 27, 1917, he tells “and I love going to the Jesus Prom.” At 6-foot-5 and 300you, and was a World War II vet who Thanks to Michelle P. Waiver serplus pounds, Rothel makes a spent 30 years in the Army Corps of vices, he is taken to the grocery store, large impression. to the park, to the mall But it’s not his size for shopping and to visit that people remember, family. it’s his larger-than-life “I like meeting new Members include people with developmental personality. people, and everywhere disabilities as well as family members and guardians According to Nicole I go no one has anything of people with developmental disabilities. Maher, the Self Advocabad to say about me,” he Council members are expected to attend quarterly cy Project Coordinator said. meetings that last two to three days, and other for the Commonwealth Maher of the CCDD events throughout the year. Council on Developraves about his infecA member serves a three-year term and is limited mental Disabilities and tiously upbeat personalto two terms of service. the one who recomity. mended him for the “He brightens up your Info: WWW.CCDD.KY.GOV or 1-877-367-5332. Council, “He is very day,” she said. “He’s very well loved everywhere positive and his energy he goes.” Engineers. John died May 17, 1975 is contagious. He’s kind and caring, And Rothel, 53, does go everywhere. when Mark was 9. really an exceptional person.” He lives in a two-bedroom apartHis mother, Dorothy Porter, passed With his age and varied experiences ment in Lexington with his cat, Angel. away, March 5, 2011. Rothel remains in the disability community, he adds During a difficult birth, oxygen was cut close to his family, speaking on the a valued perspective to the CCDD off to his brain long enough to leave phone every day with his brother Council. him with an intellectual disability. Edward. And he’s an enthusiastic presence at He spent a hunk of his childhood in Rothel proudly announces that “I’m every meeting. group homes but graduated from War- an uncle, a great uncle and a great, “The Council helps people with their ren Central High School in Bowling great uncle.” needs,” he said. “It helps them find Green in 1984. Saying Rothel is active is an exerjobs, helps them enjoy their life and it He lives independently thanks to cise in understatement. He’s an avid helps them have a better life.” n

HOW TO BECOME A MEMBER

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The Developmental Disabilities Assistance and Bill of Rights Act of 2000

IT’S THE LAW! On October 30, 2000, Congress Passed Law 106-402. It States:

Congress finds that – (1) disability is a natural part of the human experience that does not diminish the right of individuals with developmental disabilities to live independently, to exert control and choice over their own lives, and to fully participate in and contribute to their communities through full integration and inclusion in the economic, political, social, cultural, and educational mainstream of United States society.

OUR MISSION The Commonwealth Council on Developmental Disabilities will create systemic change in the Commonwealth of Kentucky that empowers individuals with developmental disabilities to achieve full citizenship and inclusion in the community through advocacy, capacity building and systemic change. The CCDD will enable individuals with developmental disabilities to exercise self-determination, be independent, be productive, and be integrated and included in all facets of community life.

GET INVOLVED TODAY – Join the CCDD Info: (877) 367-5332 or visit www.ccdd.ky.gov

Advocacy Works

‘LUNCH & LEARN’

CCDD & HDI Offer Monthly Seminars

he Commonwealth Council on Developmental Disabilities and the Human Development Institute at the University of Kentucky are offering monthly Lunch & Learn informational sessions on Tuesdays from noon to 1 p.m. Each session is offered in person at HDI’s Coldstream Campus, 1525 Bull Lea Road, Suite 100, Lexington, and online through ZOOM. Presenters are experts in their field. Sessions are interactive with time for questions. Participants are invited to bring their lunch to each session. “Knowledge is so powerful. It sets us free, and moves us forward,” said Katie Bentley of the CCDD. “It provides us with the power to help ourselves and others. When you attend our Lunch and Learns, you are building your power as you network with the experts.” An ASL sign interpreter will be available at each session. Register by 5 o’clock the day before.

shall be considered the first and primary option for persons with disabilities of working age who have communicated a desire to become employed.” What does this mean for people with disabilities? What is happening in Kentucky to ensure that people have access to the supports needed to become employed? / http://bit.ly/LLOct19 November 12 – Putting Supported Decision-Making to Work in Kentucky Laura Butler, Disability Policy Administrator at UK’s Human Development Institute Learn how people in Kentucky are using Supported DecisionMaking to regain and retain their rights. SDM means that people use trusted friends, family members and professionals to help them understand the choices and consequences involved in the decisions that they need to make. http://bit.ly/LLNov19

LUNCH & LEARN

September 24 – Letting Go: Creating a Successful Transition to Adulthood Stella Beard, Assistant Director of KYSPIN, Kentucky Special Parent Involvement Network. Will help families learn to “let go” and help their child with a disability find their wings and learn to fly. Families can begin to think outside the box and imagine what a desirable future for their child can look like. / http://bit.ly/LLSept19 October 15 – Employment First: Making It Happen in Kentucky Katie Wolf Whaley, MSW, CESP is the Director of the Kentucky Supported Employment Training Project at the University of Kentucky’s Human Development Institute. She also is the co-chair of Kentucky’s Employment First Council, President of Kentucky APSE (Association of People Supporting Employment First) and sits on the board of national APSE. Kentucky is an Employment First state, meaning that “competitive and integrated employment in the community 6

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January 14, 2020 – 874K Disabilities Coalition Advocacy Day Steve Shannon, Executive Director of Kentucky Assn. of Regional Programs. Learn how to be confident in attending the 874K Coalition events, including planning your legislative visits and what to expect at the rally in the Capitol Rotunda. The 874K Disabilities Coalition turns 20 this year. http://bit.ly/LLJan20 February 18, 2020 – Kentucky Partners in Policymaking Program Katie Bentley, CCDD Public Policy Coordinator Nicole Maher, CCDD, Self-Advocacy Project Coordinator KPIP is a leadership program for people with developmental disabilities and their family members. Learn about the program and how to apply. http://bit.ly/LLFeb20 March 10, 2020 – The History of the Disability Rights Movement Kellie McCain, CCDD Executive Director In honor of Developmental Disability Month, the Commonwealth Council on Developmental Disabilities will celebrate by sharing a history of the disability rights movement. / http://bit.ly/LLMar20 n

Reader Survey Winner of $250

Jennifer Wells

he winner of the latest Exceptional Family Magazine Reader Survey prize of $250 is Jennifer Wells. Her name was drawn at random from among those who completed the Reader Survey. Wells is the vice president of the Dr. Anthony and Geraldine Zembrodt Education Center at The Point Arc in Covington. She has a master’s degree in rehabilitation counseling and oversees transition issues for people with disabilities as they reach adulthood. She has worked at The Point Arc for nine years and is an avid reader of Exceptional Family Magazine. “I read the articles that tell the stories of other people and I love it,” she said. n

Be among the first 50 to enter a drawing for $250 Fill out the form below and mail it in or take this survey online at: www.lexingtonfamily.com/exceptional-family-reader-survey/

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Advocacy Works

YES!

Young Empowered Self-Advocates

Group Keeps Growing By John Lynch

hen Director Donna Fox A single mom of two adult sons and reflects on what she calls a grandmother of three, Fox left colthe “wow moments” and lege as a young woman. “I was made success of the Young Empowered to feel that college couldn’t accomSelf-Advocates! group, people like modate someone like me,” she said. Tyler Levy come to mind. Instead, she worked as a travel Levy is a 27-year-old from Louisville agent, got married, had children and who has Williams syndrome, a genetic learned to advocate for herself. disorder that includes developmental While raising her sons, she redelays. turned to college and earned a Five years ago, he attended his first sociology degree from the University YES! meeting. Through the three of Louisville in 2003. Eventually, she principles of the worked part-time group – selfin Louisville at awareness, selfthe Center for determination Accessible Living and self-advocacy where she now is – Levy became a the Youth Transichanged man. tion Coordinator. “The program She took over the was a big step YES! program six for me,” he said. years ago. YES! group members celebrate Halloween “It trained me to YES! started in and other holidays together speak up for my2008 as a monthself. I wasn’t speaking up until I got ly meeting place for people with into the group. Now, I’m a mentor.” intellectual disabilities aged 16 to 26. Success stories like that caught the Fox immediately expanded the scope eye of the Commonwealth Council of the group, opening it to people on Developmental Disabilities, which with any kind of disability. She also now sponsors the program with the upped the age limit, and then elimigoal of taking it statewide. nated the upper age limit altogether. Levy is a textbook case of how the Consequently, the group has YES! program works, said Fox, who spiked in size from only a handful of has led the program for six years and families to now more than 20 at each wishes something like it existed when meeting. she was young. Some members, like Levy, are Fox, 53, has rheumatoid arthritis, trained as mentors, who help others which affects every joint in her body. in the group and also accompany Fox

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YES! members (l to r): Tyler Buster, Claire Wice and Hayden Redmon

in the second part of the group’s mission – working with local high school students. Starting with two high schools, Fox and a mentor visited special education classrooms once a month for an hour. Jefferson County Public Schools officials were so impressed that they expanded the program to reach 13 high schools. Former high school students are also becoming mentors. Shelby Regan, a 2018 Butler High School graduate, is returning for her second year as a mentor for the 2019-20 school year. Serving with Regan as a mentor will be Travis Krages, who graduated from Fairdale High School this spring. “Because all of our mentors are people with disabilities, students see someone who is just like they are,” Fox said. “Special education teachers tell us, ‘My students don’t see me the way they see you.’ This is why the program is so successful.” Community meetings and classroom visits consist of small-group activities that focus first on selfawareness, the cornerstone of the program, Fox said. “The first question is ‘Who are you?’ and we must be real,” Fox said. “This is empowering because when you know who you are and what you can do, you can accept yourself. “When you recognize your limits, you also recognize what you’re able to

YES!

do. It’s a freeing experience.” That leads to self-determination and eventually to the goal of the group – self-advocacy. Word of the program has spread. After Nicole Maher, the Self Advocacy Project Coordinator for the CCDD, heard Fox speak at a statewide conference, Maher and Council member David DeSanctis attended a community meeting in Louisville. “We liked that it was run by self-advocates and we liked what we saw,” Maher said. “The curriculum was very organized, the goals were clearly laid out and they hit on the important things that can help people become independent.” The CCDD’s plan to take the program statewide starts with community meetings in Lexington, Bowling Green, Owensboro, Murray and Elizabethtown. Fox remains amazed at the success of the program. “I am so proud of this, I get cold chills thinking about it,” she said. “This program empowers young people. The passion for me is to see kids get that feeling of empowerment. You can actually see it. “You can’t buy self-empowerment at Walmart. It has to be learned, and we’ve seen it many times over.” Info: Donna Fox, Youth Transition Coordinator Center for Accessible Living / (502) 589-6620. n

outreach

CCDD Seeks to Help Hispanics With Disabilities The Commonwealth Council on Developmental Disabilities is seeking adults with disabilities and parents of children with developmental disabilities in the Hispanic community. The CCDD is interested in learning about barriers you face when advocating for services Info: Please contact Nicole Maher at nicole.maher@ky.gov or (502) 226-0784. n

Ensuring that kids with & without special needs

Maximize their f ull potential.

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• Quality Early Childhood Education Program for ages 6 weeks to 5 years • Classroom setting with nationally recognized pre-school curriculum • On-site and out-patient speech, physical and occupational therapy services • Degreed teaching staff and licensed therapists • NAEYC Accredited, 5-Star rated

290 Alumni Drive | Lexington, KY 40503 | Tel: 859 218 2322 | www.cdcbg.org 2019 Exceptional Family KY

LEGISLATORS Form Bipartisan Caucus

To Advocate For People With Disabilities

s state legislators make plans for the 2020 General Assembly, members of a newly formed caucus dedicated to the needs of Kentuckians with disabilities hope the next session can serve as a time to raise awareness about their cause. That was the plan when a bipartisan group of legislators announced Feb. 12 the formation of the Engage & Empower Caucus. Co-chairs state Rep. Al Gentry, a Louisville Democrat, and Rep. Brandon Reed, a Hodgenville Republican, both expressed their commitment to making Kentucky a more accessible place for people with disabilities. Up to 30% of Kentuckians have disabilities and 11% receive some kind of disability payment. Inclusivity is a hallmark of the caucus. Membership includes lawmakers from both parties; senators and representatives; legislators with and without disabilities, and legislators with and without backgrounds in healthcare. “I’m proud to work with Rep. Brandon Reed and our fellow caucus members who feel as strongly as we

do and are just as committed to this cause,” said Rep. Gentry, who lost an arm in an industrial accident. “We want this group to serve as a direct link between advocacy groups and our fellow legislators. “Our goal is to help make Kentucky a more accessible place in a variety of ways and to support programs that provide pathways for personal achievement and self-sustainability.” Rep. Reed, who was born with cerebral palsy and has overcome a traumatic brain injury, echoed those sentiments. “We may come from different parties and different parts of the state,” he said, “but we all want to do what we can to bring the private and public sectors together in a way that truly benefits everyone. “We’ve seen the success of this bipartisan work in our adoption and foster care policies and in making our schools safer. This caucus is built on that very same model.” The caucus introduced a host of bills in the abbreviated 2019 General Assembly and plans to make greater strides in the upcoming full session. Top priorities included dyslexia

education; a Golden Alert system for those with defined impairments; creating a similar Green Alert for veterans at-risk; and establishing a farmerfocused mental health program. Federal funding is available for that effort, said Reed, who added that the suicide rate for family farmers is higher than for military veterans. The new caucus also is focused on increasing the homestead exemption for disabled veterans, and establishing treatment and restraint rules for children with developmental disabilities. The caucus formed after a conversation between Gentry and Reed, who were freshman representatives together. “The main goal of the caucus is to bring awareness of these issues and bounce ideas off each other,” Rep. Reed said. “We can serve as a focal point in the legislature and provide automatic support when the caucus is behind something. “We got off to a good start and with the long session coming up we’ll be putting more bills forward. I’m happy to be part of this effort.” n

CAUCUS MEMBERS REPUBLICAN REPRESENTATIVES John “Bam” Carney (Majority Floor Leader), Deanna Frazier, Savannah Maddox, Michael Meredith, Melinda Gibbons Prunty, Brandon Reed & Nancy Tate DEMOCRATIC REPRESENTATIVES Rocky Adkins (Minority Floor Leader), Tina Bojanowski, Charles Booker, Kathy Hinkle, Al Gentry, Rick Rand & Lisa Willner REPUBLICAN SENATORS Julie Raque Adams (Majority Whip) & Jimmy Higdon DEMOCRATIC SENATORS Morgan McGarvey (Minority Leader) & Johnny Ray Turner (Caucus Chair)

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Caucus Co-founders: Al Gentry (left) and Brandon Reed

Independence JOIN OUR TEAM integration Inclusion The Council consists of people like you. Members include people with developmental disabilities plus family members and guardians of people with developmental disabilities. Here is the list of current members. David Allgood, Karen Brammell, Laura Butler, Camille Collins, Joe Cowan, Jennifer Duinskie, David DeSanctis, Grant Gupton, Lela Hale, Paul Hitchcock, Roxanne Holbrook, Tammy Isenberg, Claudia Johnson, Laura Lyle, David Merdian, Sherry Pickett, Mark Rothel, Norb Ryan, Erin Tiemeier, Jennifer Ulbricht, Laureen Vassil.

The mission of the Commonwealth Council on Developmental Disabilities is to create systemic change in Kentucky that empowers individuals to achieve full citizenship and inclusion in the community through education, capacity building and advocacy.

Come Join Us! If you want to affect policy, influence legislators and advocate for change, the CCDD is the place for you. Call today to learn how you can make a difference.

(877) 367-5332

www.ccdd.ky.gov

Advocacy Works

Arthur Campbell Jr:

Arthur with his letter board in his apartment in Louisville

A Living Legend

His Passion and ‘Street Advocacy’ Make Him Worthy of a Monument By John Lynch

entucky has its share of legends and the monuments that go with them – Daniel Boone, Henry Clay, Abraham Lincoln. Yet, the Commonwealth might consider honoring another legendary figure – Arthur Campbell, Jr. A dedicated disabilities activist who passionately embraces civil disobedience, Arthur helped change the way we see and treat Americans with disabilities. Picture the monument – Arthur in his wheelchair with a hand-painted sign bearing his motto – “If I Can’t Do It, It Ain’t Worth Doing.” The monument would also include an Arthur quote: “I’ve been arrested 29 times in 12 states. I wear these arrests as a badge of honor, which I dedicate to my disabled brothers and sisters everywhere.” 12

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Arthur – as everyone calls him – has advocated for disability rights for nearly four decades… and that’s after getting a late start at the age of 38. He made up for lost time, practicing “street advocacy” from one end of America to the other along with his fellow brothers and sisters who comprise what Arthur calls the “last unseen, neglected and forgotten minority… of people born with multiple and severe disabilities.” Working with the radical group ADAPT (Americans Disabled Attendant Programs Today), Arthur protested on the frontlines from California to the U.S. Capitol Rotunda. (He was arrested in both places). Their work led to the landmark Americans with Disabilities Act. Arthur was present when President George H.W. Bush signed the bill into law in 1990. In Kentucky, he has served on the boards of the Center for Accessible Living (CAL), Commonwealth Council on Developmental Disabilities, and Kentucky Protection & Advocacy. He was a founding member of the Statewide Independent Living Council and also helped lead the drive to establish the Personal Care Attendant Program, a consumer driven project that was one of the first of its kind in the nation. Things we take for granted today – wheelchair lifts on buses, ramps at countless public and private buildings, cutaways on sidewalks and curbs – Arthur fought to make that happen.

On a wall in his Louisville apartment hangs a Kentucky Proclamation praising his work from then-Governor Wallace Wilkinson. During the Clinton administration, he received a Christmas card signed by Bill and Hillary. Jan Day, Executive Director of CAL, has known Arthur for more than 30 years. Like many others, she holds him in high regard. “Arthur taught himself how to do everything and he is truly brilliant,” she said. “He’s also one of the kindest people I know. I love him dearly and would do anything I could for him.” Hank Blandford, a retired disability rights advocate with Protection & Advocacy, credits Arthur with opening his eyes to the lives of people with disabilities. “My goals and my work in my profession were changed by Arthur,” he said. “Arthur is my friend, my mentor, and the most admired and respected person in my life. “He’s also intelligent, fearless, adamant and scares the fire out of people.”

hen you consider his background, Arthur is the unlikeliest of legends. He was born in 1944 in a remote holler in Letcher County, and the birth did not go smoothly. His head was stuck in his mother’s womb for 24 hours. Consequently, Arthur emerged with cerebral palsy and a severe speech impairment. The family lived in a house without indoor plumbing until the Campbells moved

to Louisville when Arthur was 11. In Washington, D.C. in 1990, He never attended school but managed – Arthur was one of 105 people with his sister Sue’s help – to learn to read. who crawled up the steps of Still, he lived in virtual isolation in a the Capitol and then refused back bedroom in his parents’ home until to leave the Rotunda while dehe was 38. manding passage of the ADA. Arthur then went on a hunger strike The group won again. for eight days. His goal? Make his parents His example of fearless activmove him to an institution. They did and ism inspires nearly everyone he wound up in a psychiatric ward where who has worked with him. doctors discovered that instead of men“It’s important for me and tally ill, he was quite intelligent. those in our field to have people Shortly thereafter, Arthur discovered like Arthur in our lives,” Camille CAL in Louisville. His life changed forever. Collins of Protection & Advo“The Center taught people like me how cacy said. “He pushes people to to live on their own,” he said. fight for themselves, and he’s a Which is what Arthur did, making the reminder of what it’s all about. most of his newfound freedom. Remark“Arthur is blunt and honest but ably, a year after Arthur emerged from his no one challenges him because unwanted seclusion, he was selected to he’s right. He has lived through train as a disability activist in Denver. the things he talks about. That’s He joined ADAPT members to protest why he’s so powerful.” the lack of wheelchair access at a McDonPowerful like a force of nature. ald’s in Denver. That’s where Arthur was That’s what Jeff Edwards, Exfirst arrested. ecutive Director of P&A, recalls Passing the Torch: Arthur with 14-year-old The battle on the streets was depicted in from his first meeting with Grayson Kemplin of Lexington a 1998 Emmy-Award nominated docuArthur 23 years ago. mentary about Arthur called, “If I Can’t Do “It was at a meeting of the passion mean extending equal access to It, It Ain’t Worth Doing.” (Commonwealth Council on Developmeneverybody,” Grayson said. “He shows us The documentary footage – shocking to tal Disabilities). He came in and said, ‘Y’all that if we are serious about wanting inclutoday’s audience – shows the verbal abuse don’t know anything about people with sion and equal access, then we better raise hurled at the protesters by the public. disabilities.’ And he left. I was like ‘What our voices and show up to do the work.” But the tactics was that?’ worked. McDonald’s ex“But that’s what’s t 75, Arthur is still a firebrand who ecutives flew to Denver great about Arthur. He Arthur is BLUNT lives independently in Louisville. and negotiated with the speaks truth to power.” AND HONEST but An aide accompanies him for 27 protesters. Jan Day of CAL hours a week, and he stretches his SSI In the documentary, no one challenges him remembers when the monthly payment to cover his expenses. Arthur says about that Center worked to combecause he’s right... During the interview for this story, he time, “After a week of bat the phrase “confined That’s WHY HE’S civil disobedience, I was to a wheelchair.” Arthur was dressed in jeans and an ADAPT “Free Our People” T-shirt with his straight white inspired. I loved the happily agreed to be SO POWERFUL. feeling of power and the photographed tied up in hair pulled back in a ponytail. He looks fit and trim – and about 20 warm brotherhood that his wheelchair. activism gave me. That photo today hangs in Seattle in the years younger than his age. Arthur can be difficult to understand – “I realized that I didn’t need to be Starbucks corporate office of Lucy Helm, a Hank Blandford served as a translator for changed or healed. Society did. When I supporter of CAL who befriended Arthur the interview. He augments his speech by returned to Louisville I wanted to impart when she lived in Kentucky. this to others with all my heart.” Arthur’s impact spans not only space but spelling out words on a letter board. Arthur will soon re-join the P&A board Arthur focused on the Louisville bus time. Teenagers adore him as much as his and knows that advocacy demands fullservice, noting at the time that only eight contemporaries. time commitment. lifts on buses were available for a city with Grayson Kemplin of Lexington is a Arthur is a talented, prolific writer, and 5,000 people with disabilities. 14-year-old with autism who served with his work reveals his passions and his sense The street protests began with people Arthur on the P&A Advisory Board. of humor. In fact, he’s already written an in wheelchairs sitting in front of buses. He characterizes his interactions with It took two years, a protest on Derby Day Arthur as life changing. After watching the appropriate epitaph when the time comes. “If there is a heaven or hell and if there and the help of his friends in ADAPT, but documentary on Arthur, Grayson called are no wheelchairs in either place, then I eventually Louisville allocated funds for him “my hero.” more lifts. “Arthur showed me that love and comain’t going.” n

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2019 Exceptional Family KY

CAPITAL

CASE

CCDD Visits Washington Twice

In April, a group of Kentuckians (left) participated in the Disability Policy Seminar. In July, teenage self-advocates from Kentucky met with Sen. McConnell as part of a trip organized by the national Close Up Foundation.

he CCDD made its presence felt in the nation’s capital this year with two separate trips to Washington. In April, a group of 16 that included seven Council members and five staff members attended the three-day National Disability Policy Seminar. In July, the CCDD sent a group of 24 for a week as part of the national Close-Up Foundation’s civics pro-

gram. The second group included 10 high school self-advocates, each of whom brought a peer, plus three educators from Jessamine County and two staff members from the CCDD. Both trips included visits to D.C. landmarks and a day on Capitol Hill to meet with Kentucky lawmakers. “By supporting council members traveling to Washington, we are

supporting people with disabilities and putting a face on national disability issues,” said Katie Bentley, the CCDD’s Public Policy Coordinator. “These are the people with lived experiences, and they are sharing their personal stories with Congressmen. “It’s important for our elected representatives to remember our Council and know who we are.” Both trips accomplished that goal. n

April: Disability Policy Seminar Allows Group to Meet Lawmakers

Institute joined the CCDD contingent. uring the first two days of the Disability Policy Seminar, “We packed the room full and he made a point of going around attendees immersed themselves in informative sessions the room and giving everyone a chance to speak,” she said. led by experts in their fields. Bentley added that Guthrie has been the driving force behind Armed with this information, attendees converged on Capitol the Money Follows the Person initiative where Kentucky receives Hill to speak directly with their representatives. federal money to move people with disabilities out of institutions “There were good breakout sessions on how to advocate where into community living settings. we picked up tools for using talking points,” said David Allgood, a “This promotes inclusion within community living and saves Council member and also director of advocacy for the Center for Kentucky so much money,” Bentley said. Accessible Living in Louisville. The group took a private tour of the Capi“Katie Bentley gave us helpful packets of tol and walked from Sen. McConnell’s Leadinfo that prepared us for meeting with legisership office to a balcony that overlooks the lators. That was a great opportunity because Presidential Inauguration spot. we were there to champion the cause of all “We learned that Senator McConnell’s Kentuckians with disabilities.” Leadership office was the first Library of The group met with the staff of Mitch Congress,” Allgood said. McConnell, the Senate Majority Leader, and “We could see the spot where the British other Kentucky lawmakers or their staff. tried to burn down the Capitol during the The meeting in Rep. Brett Guthrie’s office War of 1812. We learned a lot of history, was particularly worthwhile, Bentley said. CCDD members met with Kentucky Congressman which was pretty neat.” n Students from UK’s Human Development Brett Guthrie during their trip to Washington. 14

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July: Close Up Foundation Trip Is an Exercise in U.S. Diversity

he 10 self-advocates and their peers who traveled to Washington in July not only were immersed in the nation’s capital, they also experienced a heavy dose of American diversity. The group, which also included three Jessamine County educators and two CCDD staff members, visited D.C. as part of the national Close Up Foundation. The Foundation’s mission is to expose students to the responsibilities of citizenship in a democracy. The Kentucky contingent was part of a larger group that included students from 14 other states, including teens from inner cities and a Native American reservation. The Kentucky group was the only one that had teens with disabilities. “There were groups from Buffalo, San Francisco, from migrant families, so our group was meeting people you don’t encounter in Jessamine County,” said Sarah Whitfield, the District’s consultant for students with disabilities. “This was amazingly beneficial. Our kids with disabilities felt like they were no dif-

ferent from anyone else.” Brandon Childers is a recent high school graduate who made the trip as a peer to Austin Buncher, a West Jessamine High student with autism. He echoed the thoughts expressed by Whitfield. “It was amazing being with Austin and seeing how people with disabilities live,” Childers said. “Austin wasn’t all that different from me and my friends. That was a good lesson to learn.” The trip was a crash course in civics. Students debated each other and learned to understand viewpoints different from their own. Each time they visited a war memorial or monument, they discussed its meaning in small groups. They also visited and studied a D.C. neighborhood, which was a highlight for Nicole Maher, the CCDD’s Self Advocacy Project Coordinator. “We saw how you could advocate in a neighborhood,” she said. “What businesses were

there and what was missing. Did it have green space, and parks and accessible bus lines?” The group also met with lawmakers including Sen. Mitch McConnell, who posed for a photo with the group in front of the Capitol building. Visiting memorials and museums was the best part for Hannah Sobleski, an East Jessamine High student with epilepsy. “The Lincoln Memorial was really cool. It was so huge,” she said. “I learn best visually so I really liked the natural history museum at the Smithsonian.” n

Photo by CCDD member Grant Gupton

bluegrass.org is now

We see the good ahead. Caring professionals serving Central Kentucky since 1966. ∙ Mental Health ∙ Substance Use ∙ Intellectual and Developmental Disability 24-Hour Helpline 1.800.928.8000 | newvista.org 2019 Exceptional Family KY

Advocacy Works

Down Syndrome Standing next to Brack Duncan, Josh Banks gives the thumbs up sign while being initiated into UK’s FarmHouse fraternity. Photo by: Arden Barnes, UK Kernel Staff Photographer

Friends Become Fraternity Brothers After Josh Banks Joins UK’s FarmHouse By John Lynch

ven amid the emotion of the moment, UK student Brack Duncan realized he was participating in something memorable – and it was all because of his friend Josh Banks. With Brack at his side, Josh repeated the oath of membership to the FarmHouse fraternity on the UK campus last fall and became only the second person with Down syndrome to be initiated into a college fraternity or sorority in Kentucky. He follows in the footsteps of Alexis Cain, a woman who joined Alpha Sigma Alpha in 2015 as part of the College to Career program at Murray State University. 16

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But making history was not the point of the event, according to Brack, a 23-year-old recent UK graduate and former FarmHouse vice president. Sharing a special moment with his friend was his only concern. Still, it was a moment when deep feelings nearly overwhelmed him. “It was an awesome event. My whole family was there and I was so emotional,” Brack said. “That moment was so special. As it was happening, I knew this was something I was always going to remember. It was all because of Josh.”

oth from Winchester, Brack and Josh have been friends for five years, ever since Brack started working after high school at STRIDE, a therapeutic recreational facility in Winchester for adults with disabilities. Brack and Josh quickly bonded over a shared passion – clogging. Brack was a champion clogger for years and now judges contests. Josh participated on a team for people with special needs. Along with dance and performance, they both love music. Soon their relationship spilled past work hours and blossomed into friendship. Friday is their day together and you can find them anywhere – at the movies, playing basketball, at the Louisville Zoo, shopping or visiting Brack’s family. Josh attended the wedding of Brack’s first cousin, and the two

friends attended a Faith Hill and Tim McGraw concert. “Josh loves country music and sings all the time,” Brack said. Knowing how much Josh loves to perform, Brack entered the pair in a Kentucky’s Got Talent contest at UK. They danced together and Josh was an immediate crowd favorite. The pair won $300 for the Cowboy Up for a Cure cancer charity. Brack also connected with Shop Local Kentucky, which posted a video of the guys dancing together. The video went viral and raised $5,000 in 24 hours. Soon thereafter FarmHouse President Ben Bohannon suggested that Josh join the fraternity – as an associate member, a position reserved for non-students. “Josh was hanging out at the fraternity and he’s so positive that we wanted to invite him to FarmHouse as a way of saying thank you to Josh,” Bohannon said. “He loves FarmHouse and we love him so we wanted to make sure he really knew that.” Next thing you know, Bohannon led the pearl ceremony that initiated Josh into the group.

aking new friends is nothing new for Josh. His mother describes him as a charmer who has yet to meet a stranger. “He’ll go into a store and walk right up and introduce himself to people,” Nancy Banks said. She is the mother of four (Josh is the youngest) and is a retired special education assistant at Clark County schools. “All of this with the fraternity is like every day for him,” she said. “He loves the limelight and he likes hanging out with the guys at UK.” Growing up, Josh also loved attending school and earned a certificate of completion at the age of 21 from George Rogers Clark High. He lives at home with his mother and participates at STRIDE four days a week. He performed in the Christmas play there, cast as The Thing, a Marvel Comics character, which allowed him to dress up in costume, another big thrill. His biggest booster in the audience

was Brack. The two friends have traveled together to Nashville where they attended concerts and visited – at Josh’s insistence – the Dukes of Hazard car, on display in Music City.

“

“HE’S ALWAYS IN A GOOD MOOD AND JUST EXUDES HAPPINESS. IF I COME OUT OF AN EXAM OR FROM A CLASS AND I SEE JOSH, IT MAKES MY DAY. HE MAKES EVERYBODY HAPPY.”

happiness. “If I come out of an exam or from a class and I see Josh, it makes my day. He makes everybody happy.” Josh has inspired Brack to launch his own charity – Buddies of the Bluegrass, a nonprofit dedicated to raising funds for families who adopt children with special needs. Brack is one of eight children, four of whom are adopted. In 2018, Brack’s charity staged a benefit concert at Manchester Music Hall that featured four bands, a DJ and a special guest, Stanford’s Laura Kirkpatrick of America’s Next Top Model. The event raised $6,000 for Scot and Jackie Rawe of Alexandria, Ky., who have adopted a child with special needs from Eastern Europe. Josh performed at the event with The Sean Sullivan Trio. He sang along to one of his favorite songs, “Save a Horse, Ride a Cowboy.” “It was awesome. Everyone loved it,” Brack said. “Josh sang ‘Sweet Home Alabama’ as an encore. He was up there living the dream.” n

BEN BOHANNON

ince Josh has joined the fraternity, he has made new friends of the brothers and participated in FarmHouse events like pumpkin carving at Halloween. For most of the FarmHouse brothers seeing Josh brightens their day. “I wish there was a better word I could use but it’s awesome to have Josh at FarmHouse,” Bohannon said. “He’s always in a good mood and just exudes

Country fans: Brack Duncan and his fraternity brother Josh Banks at a Faith Hill & Tim McGraw concert.

2019 Exceptional Family KY

Resource List 2019

Angel Clark of Lexington with her two children, Ty, 12, and Abrianna, 9

General Commonwealth Council on Developmental Disabilities 656 Chamberlin Ave., Suite C, Frankfort, Ky., 40601 (877) 367-5332 / (502) 564-7841 The mission of the CCDD is to create systemic change in Kentucky that empowers individuals to achieve full citizenship and inclusion in the community through education, capacity building and advocacy. CCDD is a dynamic mix of people with unique backgrounds and experiences. Members include 16 governor-appointed individuals with disabilities and family members of individuals with disabilities, as well as representatives from major state agencies that serve people with developmental disabilities. https://ccdd.ky.gov The Arc of the United States 1825 K Street, NW, Suite 1200, Washington, DC 20006 (800) 433-5255 / 202-534-3700 / info@thearc.org The national organization of and for people with intellectual disabilities and related developmental disabilities and their families. www.thearc.org The Arc of Kentucky Sherri Brothers, 706 East Main St., Suite A, Frankfort, Ky., 40601 / (502) 875-5225 / (800) 281-1272 sherri@arcofky.org The Arc of Kentucky believes that individuals with intellectual and developmental disabilities are contributing

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members of schools, work places, churches, synagogues, neighborhoods and their communities. The Arc values services and supports that enhance the quality of life through interdependence, friendship, choice, and respect for individuals with intellectual and developmental disabilities. / www.arcofky.org Kentucky ARC Chapters Ashland: Toni Mullins / (606) 694-1797 toni@guidedlivingllc.com Counties served: Bath, Menifee, Montgomery, Morgan, Rowan, Boyd, Carter, Elliott, Greenup, Lawrence. Barren County: James Cheely / (270) 590-9013 Central Kentucky: Sherri Brothers / (502) 517-6511 Sherri@arcofky.org Floyd County/Prestonsburg: Earnest Colt Vance (606) 268-0808 Hardin County: Clara Harrison / (270) 300-6659 Logan County: Thomas Thompson / (270) 726-2218 Louisville Area: Serena Jacobs / (502) 939-8273 Meade County: Mary Greenwell / (270) 980-0150 Northern Kentucky The Point: Judi Gerding (859) 491-9191 Owensboro: Sally Phillips / (270) 577-8866 Office / (270)-685-2976 Warren County: Joy Baum / (270) 303-0311 The Arc of Kentucky Self Empowerment Network: Selfempowerment@arcofky.org Self Empowerment Network of Lake Cumberland: Donna Littrell / (606) 875-9847 Self Empowerment Network Different Abilities South Central Kentucky: Renee Hathaway (270) 432-5938

Self Empowerment Network The Arc of Ashland: Toni Mullins / (606) 694-1797 Best Buddies Kentucky 1911A Bardstown Road, Louisville, Ky., 40205 (502) 742-1698 Best Buddies Kentucky, founded in 2009, is dedicated to establishing a global volunteer movement that creates opportunities for people with intellectual and developmental disabilities such as Down syndrome, autism and traumatic brain injuries. www.bestbuddies.org/kentucky/ Big Brothers Big Sisters Organizations The mission of BBBS is to help all children reach their full potential through professionally supported one-to-one mentoring relationships. Bluegrass 436 Georgetown Street, Lexington, Ky., 40508 www.bbbs-bluegrass.org Greater Cincinnati Reading Road Suite 148, Cincinnati, Ohio, 45202 www.bigsforkids.org Kentuckiana 1519 Gardiner Lane, Louisville, Ky., 40218 (877) 588-2300 / (502) 587-0494 / www.bbbsky.org Madisonville-Hopkins County 1 South Main Street, P.O. Box 305, Madisonville, Ky., 42431 / www.Madisonvillebbbs.org Tristate P.O. Box 1844, Ashland, Ky., 41105 www.bbbstristate.org

Resource List 2019 Bluegrass Care Navigators 2312 Alexandria Drive, Lexington, Ky., 40504 (855) 492-0812 Bluegrass Care Navigators (formerly Hospice of the Bluegrass) provides physical, emotional and spiritual care for adult and pediatric patients with life-limiting illness, and their families, at home, in nursing facilities and at Hospice Care Centers. Support and bereavement services extend to family members and anyone in the community experiencing grief. Bluegrass Care Navigators provides care in 32 central, northern and southeastern Kentucky counties. www.hospicebg.org Brighton Center Inc. 741 Central Ave., Newport, Ky., 41071 (859) 491-8303 This non-profit organization’s mission is to create opportunities for individuals and families to reach selfsufficiency through family support services, education, employment and leadership. Brighton Center creates and encourages opportunities for individuals and families to reach self-sufficiency through family support services, education, employment and leadership. Brighton Center creates and encourages mutual respect and maximizes resources. www.brightoncenter.com

Build Inclusion, Inc. 1050 Chinoe Road, Suite 207, Lexington, Ky., 40502 (859) 286-9713 An organization created by parents, self-advocates and industry professionals to facilitate natural networks and community access for individuals with disabilities through education, engagement and employment. www.buildinclusion.org Centers for Accessible Living The Center for Accessible Living is an innovative leader in empowering all people to achieve their goal of independent living while involving the entire community. Louisville Location 501 S. Second St., Suite 200, Louisville, Ky., 40202 (502) 589-6620 / Toll Free (888) 813-8497 webinfo@calky.org / www.calky.org Murray Location 1051 N. 16th St., Suite C, Murray, Ky., 42071 (270) 753-7676 / Toll Free (888) 261-6194 calmur@calky.org / www.calky.org Northern Kentucky Location P.O. Box 12304, Covington, Ky., 41012 (859) 940-3843 / rthompson@calky.org www.calky.org

Cerebral Palsy Group 3506 Summerport Village Parkway, Windermere, Fla., 34786 / (866) 510-0717 Cerebral Palsy Group is an online resource for anyone who has been affected by cerebral palsy, brain injuries or birth injuries. The goal is continue to provide the most upto-date information from trusted sources as it becomes available. cerebralpalsygroup.com Children’s Home of Cincinnati 5050 Madison Road, Cincinnati, Ohio, 45227 (513) 272-2800 / (513) 808-9632 The Children’s Home of Cincinnati is a private, nonprofit social service agency that improves the lives of children and their families through services in four areas: adoption, early childhood, education and mental health. The Home serves children of all ages and their families, including adoptive children, new parents needing support and guidance, children with special education needs, and children with mental health diagnoses. www.thechildrenshomecinti.org Christian Appalachian Project 2528 Palumbo Drive, Lexington, Ky., 40509 (859) 269-0635 / (866) 270-4227

2019 Calendar Quarterly Council Meetings • Aug. 22-23, 2019 • Nov. 21-22, 2019

CCDD Office: 656 Chamberlin Ave, Suite C Frankfort, Ky.

Other Notable Dates: Kentucky Partners in Policy Making Sept. 13, 14: (Friday & Saturday): Session I Oct. 18, 19: (Friday & Saturday): Session 2 Nov. 15, 16: (Friday & Saturday): Session 3 To apply for the next KPIP session, please email CCDD@ky.gov October: National Disability Employment Awareness Month

Lunch & Learn Presentations Each one-hour session (noon-1 p.m.) is offered in person on a Tuesday at HDI’s Coldstream Campus, 1525 Bull Lea Road, Suite 100, Lexington, and online through ZOOM. An ASL interpreter will be available at each session. Sept. 24 - Letting Go: Creating a Successful Transition to Adulthood by Stella Beard, Assistant Director of KYSPIN (Kentucky Special Parent Involvement Network). http://bit.ly/LLSept19 Oct. 15 - Employment First: Making It Happen in Kentucky by Katie Wolf Whaley, Director of the Kentucky Supported Employment Training Project at UK’s Human Development Institute. / http://bit.ly/LLOct19 Nov. 12 - Putting Supported Decision Making to Work in Kentucky by Laura Butler, Disability Policy Administrator at UK’s Human Development Institute. / http://bit.ly/LLNov19 2019 Exceptional Family KY

Resource List 2019 CAP is a Kentucky-based, non-profit Christian organization committed to serving people in need in Appalachia by providing physical, spiritual and emotional support through a wide variety of programs and services. www.christianapp.org Community Action Kentucky 101 Burch Court, Frankfort, Ky., 40601 (800) 456-3452 / (502) 875-5863 Community Action Kentucky (CAK) is a statewide association representing and assisting the 23 community action agencies as they work to empower individuals and families to attain greater economic success. www.kaca.org Easter Seals Cardinal Hill 2050 Versailles Road, Lexington, Ky., 40504 (859) 367-7217 / www.cardinalhill.org West Kentucky 801 N. 29th St., Paducah, Ky., 42001 (270) 444-9687 www.eswky.easterseals.com Home of the Innocents 1100 E. Market St., Louisville, Ky., 40206 (502) 596-1000 / info@homeoftheinnocents.org Home of the Innocents is the region’s open arms to kids in crisis, providing therapeutic, loving care to children who are victims of abuse, abandonment and neglect. It’s also home to children who have autism and other behavioral health diagnoses; who are medically fragile; and families with exceptional needs. Open Arms Children’s Health is the Home’s health care facility offering pediatric medical, dental, hearing, vision and pharmacy. / www.homeoftheinnocents.org Human Development Institute University of Kentucky, 114 Mineral Industries Building, Lexington, Ky., 40506 (859) 257-4356 HDI’s mission is to promote the inclusion, independence and contributions of people with disabilities and their families throughout the life span. HDI achieves that mission through education, research and evaluation, information sharing, leadership and advocacy across the state and the nation. www.hdi.uky.edu Independence Place, Inc. 2358 Nicholasville Road, Suite 180, Lexington, Ky., 40503 (859) 266-2807 / (866) 266-2807 Independence Place is a non-profit, consumer driven, non-residential Center for Independent Living, serving people with disabilities of all ages. The mission is to assist people with disabilities to achieve their potential for community inclusion through improving access and equal opportunity. / www.ipky.org KARRN (Kentucky Appalachian Rural Rehabilitation Network) phkitz1@uky.edu A collaborative team composed of individuals impacted by neurological conditions, providers who serve them, members of communities in which they live, advocates,

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educators and researchers who investigate these conditions. / www.karrn.org Kentucky Association of Sexual Assault Programs P.O. Box 4028, Frankfort, Ky., 40604 (502) 226-2704 / erecktenwald@kasap.org KASAP’s mission is to speak with a unified voice against sexual victimization. KASAP is funded in whole or in part with public funds. / www.kasap.org Kentucky Partnership for Families and Children, Inc. 207 Holmes St., Frankfort, Ky., 40601 (502) 875-1320 / (800) 369-0533 kpfc@kypartnership.org KPFC’s vision is that all families raising youth and children affected by behavioral health challenges will achieve their fullest potential. KPFC’s mission is to empower families affected by behavioral health challenges to initiate personal and systems change. www.kypartnership.org Kentucky Special Parent Involvement Network, Inc. (KY-Spin) 10301-B Deering Road, Louisville, Ky., 40272 (502) 937-6894 / (800) 525-7746 The mission is to link families and individuals with disabilities to valuable resources that will enable them to live productive, fulfilling lives. A project of KY-SPIN, Inc., is the KY-SPIN Parent Center PTI (Parent Training & Information Project), which is funded by the U.S. Dept. of Education. KY-SPIN Parent Center provides training, information and support for children and youth with all types of disabilities (birth through 26 years old), their parents, families and professionals. www.kyspin.com Kentucky Youth Advocates 10200 Linn Station, Suite 310, Louisville, KY. 40223 (502) 895-8167 / (888) 825-5592 KYA advocates for policies that give children the best possible opportunities for a brighter future and are making Kentucky the best place in America to be young. www.kyyouth.org Kerrington’s Heart, Inc. P.O. Box 911074, Lexington, Ky., 40591 (859) 509-9857 Dedicated to the education, support and encouragement of children with heart disease, their families and caregivers. www.kerringtonsheart.org The Molly Johnson Foundation P.O. Box 215, Fisherville, Ky., 40023 (502) 724-0067 The Molly Johnson Foundation was created to assist families of children with special needs in a variety of ways, including financial help, supplying medical equipment, home accommodations and travel expenses for services. The Molly Johnson Foundation desires to make a difference in the lives of these families in the best way possible. / www.themollyjohnsonfoundation.org

A Mother’s Rest 32 W. Main St., New Market, Md., 21774 Organizes year-round small group respite retreats for families with children (youth or adult) with disabilities. 2019 Locations include Versailles and Mammoth Cave. www.amothersrest.org Public Library Home Delivery Service Many of the state’s county public libraries offer home delivery service for those with physical limitations that prevent them from visiting. Below are libraries in the state’s most populous areas. Contact the public library in your county to inquire about services. Boone County (Florence): (859) 342-2665 www.bcpl.org/docs/library/we-deliver.pdf Campbell County (Newport): (859) 572-5035 www.cc-pl.org/services/adult-outreach-services Kenton County (Covington): (859) 962-4000 www.kentonlibrary.org/outreach/homebound Lexington: (859) 231-5500 www.lexpublib.org/outreach Louisville: (502) 574-1611 www.lfpl.org/bookstoyou.html Warren County (Bowling Green): (270) 781-4882 https://warrenpl.org/using-the-library/ Daviess County (Owensboro): (270) 684-0211 www.dcplibrary.org/books-to-you Paul Sawyier (Frankfort) / (502) 352-2665 www.pspl.org/outreach-services Hardin County (Elizabethtown): (270) 769-6337 www.hcpl.info/services.asp Safe Kids Safe Kids is a program that brings together health and safety experts, educators, corporations, foundations, governments and volunteers to educate and protect families. Safe Kids is a global network of organizations dedicated to preventing accidental injury. Efforts are needed because as many as 90% of accidental injuries can be prevented. www.safekids.org Fayette County Coalition Kentucky Children’s Hospital, 800 Rose St., Lexington Ky., 40536 / (859) 323-1153 www.ukhealthcare.uky.edu/safekids Kentucky Coalition Kentucky Department of Health, 333 Waller Ave., Suite 242, Lexington, Ky., 40504 / (859) 323-6194 Louisville and Jefferson County Coalition Norton Children’s Hospital, 315 E. Broadway, Louisville, Ky., 40202 / (502) 629-7335 Special Persons Advocacy Network bobbie.hancock@uky.edu / ((859) 734-4378 P.O. Box 1861, Danville, Ky., 40423 SPAN seeks to support individuals with disabilities and their families by facilitating community involvement and support groups. TASH Disability Advocacy Worldwide (202) 467-5730, ext. 1309 An international association of people with disabilities, family members, other advocates and professionals

The Autism Society of the Bluegrass serves as resource and support for people in Central Kentucky who care about autism.

es Conferenc nal & Educatio Lectures

2019 Autism Walk Sept 22 / 2-5pm Kroger Field at UK

Reso ur Lend ce ing Libra ry

Do you or someone you know have a disability?

Monthly Meetings Monday of Held the last 6:30pm each month, â&#x20AC;&#x2122;s el ha at St. Mic rch hu C al op sc Epi e Dr. nt fo le 2025 Bel n to ng Lexi

visit our website or facebook page

asbg.org â&#x20AC;˘ facebook.com/Autism-Society-of-the-Bluegrass

P protecting rights encouraging E inclusion optimizing O supports promoting P choice lifting L expectations educating E communities

Low Interest Loans for Assistive Technology

To apply call toll free (877) 675-0195 or online:

Are you in need of a van lift, computer, communication device, wheelchair ramp, hearing aids or other assistive technology ?

KATLC.KY.GOV Call for current interest rates Loans can range from $500-$50,000

THE ARC OF KENTUCKY is a statewide grassroots organization that works to ensure a quality life for children and adults with intellectual and developmental disabilities. The Arc of Kentucky 706 East Main, Suite A Frankfort, KY 40601 / (502) 875-5225 www.arcofky.org

The Arc PROMOTES AND PROTECTS THE HUMAN RIGHTS of people with intellectual and developmental disabilities and actively supports their full inclusion and participation in the community throughout their lifetimes.

Achieve with Us:

Advocate Educate Empower

Encourage for Change

The Arc of Kentucky 5K Fast, Furious, Fun Run/Walk October 5 - 9:00 a.m. Coldstream Park, 1850 Pisacano Drive, Lexington, KY 40511 2019 Exceptional Family KY

Resource List 2019List Resource

2019

working for a society in which inclusion of all people in all aspects of society is the norm. / www.tash.org Kentucky Chapter Located in Louisville Darrell Mattingly / (859) 373-8920 www.tash.org/chapters/kentucky-tash/ Tourette Syndrome Association Lexington Support Group (270) 317-3046 Louisville Support Group (502) 235-0704 www.tsa-usa.org United Way Bluegrass 100 Midland Ave., Suite 300, Lexington, Ky., 40508 211 Information Line / (859) 233-4460 www.uwbg.org Kentucky P.O. Box 4653, Louisville, Ky., 40204 334 E. Broadway, Suite 308, Louisville, Ky., 40204 (502) 589-6897 / www.uwky.org Metro P.O. Box 4488, Louisville, Ky., 40204 (502) 583-2821 / Fax (502) 292-5673 Fights for the education, health, housing and financial stability of every person. www.metrounitedway.org WHAS Crusade for Children 520 West Chestnut St., Louisville, Ky., 40202 (502) 582-7706 The WHAS Crusade for Children, established in 1954, raises money for agencies, schools and hospitals to better the lives of children with special needs. The Crusade Advisory Panel, an independent board of interdenominational ministers, decides how donations are distributed each year. / www.whascrusade.org

STATE RESOURCES Brain Injury Acquired Brain Injury (ABI) Waiver 275 E. Main St. 6W-B, Frankfort, Ky., 40621 (502) 564-5198 / Toll Free (866) 878-2626 This program is designed to provide intensive services and support to adults with acquired brain injuries as they work to re-enter community life. dmsweb@ky.gov Traumatic Brain Injury (TBI) Trust Fund 275 E. Main St. 3E-E, Frankfort, Ky., 40601 (502) 564-6930 / toniaawells@ky.gov This program offers flexible funding and support for people with traumatic brain injuries. The fund supports supplemental community based efforts to meet the special needs of individuals with brain injury. chfs.ky.gov/agencies/dail/Pages/tbitrust.aspx Cabinet for Health and Family Services Commission for Children with Special Health Care Needs The Commission for Children with Special Health Care Needs has received a grant from the federal

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Health Resources and Services Administration to create Family to Family Health Information Centers throughout the commission offices. The centers will be staffed by mentors who are parents of children with special needs and will provide support to families of individuals with special needs. Parents and caregivers have the opportunity to connect with another parent or caregiver with a similar situation or special health care need. chfs.ky.gov/agencies/ccshcn/Pages/about.aspx Regional Offices: Central office / Louisville 310 Whittington Parkway, Louisville, Ky., 40222 (502) 429-4430 / Toll Free (800) 232-1160 Serving Bullitt, Carroll, Gallatin, Henry, Jefferson, Oldham, Owen, Shelby, Spencer, Trimble counties and statewide. Barbourville 110 Johnson Lane, Barbourville, Ky., 40906 (606) 546-5109 / (800) 348-4279 Serving Bell, Clay, Harlan, Jackson, Laurel, Rockcastle, Knox and Whitley counties. Bowling Green 2040 Louisville Road, Bowling Green, Ky., 42101 (270) 746-7816 / (800) 843-5877 Serving Allen, Barren, Butler, Christian, Edmonson, Hart, Logan, Metcalfe, Monroe, Simpson, Todd and Warren counties. Elizabethtown 580 Westport Road, Elizabethtown, Ky., 42701 (270) 766-5370 / (800) 995-6982 Serving Breckinridge, Grayson, Hardin, Larue, Marion, Meade, Nelson and Washington counties. Hazard 103 Town and Country Lane, Suite M, Hazard, Ky., 41701/ (606) 435-6167 / (800) 378-3357 Serving Breathitt, Knott, Lee, Leslie, Letcher, Owsley, Perry and Wolfe counties. Lexington 333 Waller Ave., Suite 300, Lexington, Ky., 40504 (859) 252-3170 / (800) 817-3874 Serving Anderson, Bourbon, Boone, Boyle, Clark, Estill, Fayette, Franklin, Garrard, Grant, Harrison, Jessamine, Kenton, Lincoln, Madison, Mercer, Nicholas, Powell, Scott, and Woodford counties. Morehead 214 W. First St., Morehead, Ky., 40351 (606) 783-8610 / (800) 928-3049 Serving Bath, Boyd, Bracken, Campbell, Carter, Elliot, Fleming, Floyd, Greenup, Lawrence, Lewis, Magoffin, Mason, Menifee, Morgan, Montgomery, Pendleton, Robertson and Rowan counties. Owensboro 1600 Breckenridge St., Suite 1200, Owensboro, Ky., 42303 / (270) 687-7038 (877) 687-7038 Serving Daviess, Hancock, Henderson, Hopkins, McLean, Muhlenberg, Ohio, Union and Webster counties. Paducah 400 Park Ave., Bldg. D, Paducah, Ky., 42001 (270) 443-3651 / (800) 443-3651 Serving Ballard, Caldwell, Calloway, Carlisle, Crittenden, Fulton, Graves, Hickman, Livingston, Lyon, Marshall, McCracken and Trigg counties. Prestonsburg 5000 Ky. Route 321, Prestonsburg, Ky., 41653

(606) 889-1761/ (800) 594-7058 Serving Floyd, Johnson, Magoffin, Martin, Pike counties. Somerset Professional Plaza, 401 Bogle St., Suite 104, Somerset, Ky., 42503 (606) 677-4120 (800) 525-4279 Serving Adair, Casey, Clinton, Cumberland, Green, McCreary, Pulaski, Russell, Taylor and Wayne counties. Family to Family Health Information Centers Western Region Located at the offices of the Commission for Children with Special Health Care Needs, Family to Family HICs are family-run centers that assist families of children and youth with special health care needs and the professionals who serve them. The goal is to help keep children healthy by promoting regular medical care. F2F HICs help families make more informed choices by providing support, information, resources and training. F2F HICs promote access to community based, selfdirected services that are available to children with special needs. Louisville 310 Whittington Parkway, Suite 200, Louisville, Ky. 40222 / (502) 429-4430 Sondra Gilbert Sondra.GIlbert@ky.gov / (270) 852-5533 Eastern Region (Including Louisville) Debbie Gilbert DebbieA.Gilbert@ky.gov / (502) 429-4430 - Ext. 2069 chfs.ky.gov/agencies/ccshcn/Documents/F2F_Brochure.pdf Hart-Supported Living Program (502) 564-6930 ext. 3491 The Hart-Supported Living program is for Kentuckians with disabilities to request grants so they can live in, contribute to and participate in their communities. Any Kentuckian with a disability recognized under the Americans with Disabilities Act (ADA) is eligible to apply for a Hart-Supported Living grant. chfs.ky.gov/agencies/dail/Pages/hslp.aspx Home and Community-Based Waiver (HCB) (502) 564-5560 The Home and Community-Based Waiver program provides Medicaid coverage to eligible persons who are aged or disabled and would otherwise require nursing facility level of care. Services include but are not limited to the following: assessment and reassessment, case management, homemaker services, personal care services, respite care, minor home adaptations, attendant care and adult day health care. chfs.ky.gov/agencies/dms/dca/hcbsb/Pages/hcb-waiver. aspx Kentucky ADA Office 501 High St., Frankfort, Ky., 40601 (502) 564-1835 The State Office of the Americans with Disabilities Act provides technical assistance, consultations and training for state government employees. ADA Coordinator: Donna Shelton www.personnel.ky.gov/Pages/ada.aspx

List 2019 ResourceResource List 2019 Other Kentuckians should contact the Southeast ADA Center at 1419 Mayson St. NE, Atlanta, Ga., 30324 (800) 949-4232 / www.adasoutheast.org Kentucky Assistive Technology Loan Corp. 275 East Main St., Mail Drop 2 E-K, Frankfort, Ky. 40621 / (877) 675-0195 The Kentucky Assistive Technology Loan Corporation (KATLC) offers low interest loans for qualified applicants with disabilities for assistive technology. Working with its lending partner, Fifth Third Bank, KATLC can provide loans for modified vehicles, hearing aids, adapted computers, mobility devices, augmentative communication devices or any other type of equipment or home modification that will improve the quality of life or increase the independence of Kentuckians with disabilities. / www.katlc.ky.gov Kentucky Cabinet for Workforce Development Connecting Kentuckians to employment, workforce information, education and training. www.kcc.ky.gov Kentucky Children Insurance Program (K-CHIP) (877) 524-4718 / chfs.kchip@ky.gov K-Chip’s mission is to provide free health insurance to low income, uninsured children in Kentucky. The K-CHIP staff understands that access to health care is important and that preventive care is a large part of health care. kidshealth.ky.gov/Pages/index.aspx

Kentucky Coalition Against Domestic Violence 111 Darby Shire Circle, Frankfort, Ky., 40601 (502) 209-5382 In addition to providing a safe, secure environment for victims/survivors and their children, programs now also offer a variety of support services to residents and non-residents including legal/court advocacy, case management, safety planning, support groups, individual counseling, housing assistance, job search and children’s groups. / www.kcadv.org Kentucky Commission on the Deaf and Hard of Hearing 632 Versailles Road, Frankfort, Ky., 40601 (502) 573-2604 (V/TTY) / (800) 372-2907 (V/TTY, in Kentucky only) / kcdhh@mail.state.ky.us www.kcdhh.ky.gov/ Kentucky Community Mental Health Centers Publicly-funded community services are provided for Kentuckians who have problems with mental health, developmental and intellectual disabilities, or substance abuse, through Kentucky’s 14 regional Boards for Mental Health or Individuals with an Intellectual Disability (Regional MHID Boards). Regional MHID Boards are private, nonprofit organizations established by KRS Chapter 210 (see Related Links) which serve residents of a designated multi-county region. chfs.ky.gov/agencies/dms/dpo/bpb/Pages/cmhc.aspx

Regional Offices: Adanta MH / MR Board 259 Parkers Mill Road, Somerset, Ky., 42501 (606) 679-4782 Serving Adair, Casey, Clinton, Cumberland, Green, McCreary, Pulaski, Russell, Taylor, Wayne counties. www.adanta.org Centerstone Kentucky 10101 Linn Station Road, Suite 600, Louisville, Ky. 40223 / (502) 589-8600 Serving Bullitt, Henry, Jefferson, Oldham, Shelby, Spencer, Trimble counties. centerstone.org/locations/kentucky/ Communicare, Inc. 107 Cranes Roost Court, Elizabethtown, Ky., 42701 (270) 765-2605 Serving Breckinridge, Grayson, Hardin, Larue, Marion, Meade, Nelson, Washington counties. www.communicare.org Comprehend, Inc. 611 Forest Ave., Maysville, Ky., 41056 (606) 564-4016 Serving Bracken, Fleming, Lewis, Mason, Robertson counties. www.comprehendinc.org Cumberland River Comprehensive Care 175 Peachtree St., Corbin, KY 40701 (606) 526-9459 Serving Bell, Clay, Harlan, Jackson, Knox, Laurel,

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hdi.uky.edu

Exceptional Family Magazine Is

Free! To Request Free Copies for You, Your School or Organization Call (859) 223-1765 Click www.lexingtonfamily.com Email john@lexingtonfamily.com

Visit the HDI Center for Assistive Technology Services (HDI CATS) This Regional Assistive Technology Center serving Lexington and surrounding counties offers:

• Lending Library of devices • Demonstration of assistive technologies • Training on assistive technology devices

2358 Nicolasville Rd. Ste. 180 Lexington, KY 40503 hdiatcenter@l.uky.edu | katsnet.at4all.com 859-218-7979

2019 Exceptional Family KY

Resource List 2019 Rockcastle, Whitley counties. www.crbhky.org Four Rivers Behavioral Health 425 Broadway, Suite 201, Paducah, Ky., 42001 (270) 442-7121 / 24-hour Line (800) 592-3980 Serving Ballard, Calloway, Carlisle, Gallatin, Graves, Hickman, Livingston, McCracken,Marshall counties. www.4rbh.org Ky. River Community Care P.O. Box 794. 178 Community Way, Jackson, Ky., 41339 / (606) 666-7591 Serving Breathitt, Knott, Lee, Leslie, Letcher, Owsley, Perry, Wolfe counties. krccnet.com Lifeskills 380 Suwanee Trail St., P.O. Box 6499, Bowling Green, Ky. 42102-6499 / (270) 901-5000 Serving Allen, Barren, Butler, Edmonson, Hart, Logan, Metcalfe, Monroe, Simpson, Warren counties. www.lifeskills.com Mountain Comprehensive Care Center 104 S. Front Ave., Prestonsburg, Ky., 41653 (606) 886-8572 Serving Floyd, Johnson, Magoffin, Martin, Pike counties. www.mtcomp.org New Vista (Formerly bluegrass.org) 1351 Newtown Pike, Lexington, Ky., 40511 (859) 253-1686 / (859) 272-7483 24-hour help line (800) 928-8000 Serving Anderson, Bourbon, Boyle, Clark, Estill, Fayette, Garrard, Harrison, Jessamine, Lincoln, Madison, Mercer, Nicholas, Powell, Scott, Woodford counties. newvista.org NorthKey Community Care 502 Farrell Drive, P.O. Box 2680, Covington, Ky., 41011 (859) 578-3200 / Toll Free (877) 331-3292 Serving Boone, Campbell, Carroll, Gallatin, Grant, Kenton, Owen, Pendleton counties. www.northkey.org Pathways, Inc. P.O. Box 790. 1212 Bath Ave., 8th floor, Ashland, Ky., 41101/ (606) 329-8588 ext. 4078 www.pathways-ky.org Serving Bath, Boyd, Carter, Elliott, Greenup, Lawrence, Menifee, Montgomery, Morgan, Rowan counties. Pennyroyal MH / MR Board 3999 Fort Campbell Blvd., Hopkinsville, Ky., 4220 (270) 886-2205 Serving Caldwell, Christian, Crittenden, Hopkins, Lyon, Muhlenberg, Todd, Trigg counties. www.pennyroyalcenter.org River Valley Behavioral Health, Inc. 1100 Walnut St., P.O. Box 1637, Owensboro, Ky., 42301 / (270) 689 6500 Serving Davies, Hancock, Henderson, McLean, Ohio, Union, Webster counties. www.rvbh.com Kentucky Department for Behavioral Health, Developmental and Intellectual Disabilities 275 E. Main St., Frankfort, Ky., 40621 (502) 564-4527 / (502) 564-7700 The department oversees services in Kentucky

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to people with intellectual and other developmental disabilities, mental health and substance use disorders. www.dbhdid.ky.gov/kdbhdid Kentucky First Steps State Lead Agency 275 E. Main St., HS2W-C, Frankfort, Ky., 40621 (877) 417-8377 First Steps is a statewide intervention system that provides services to children with developmental disabilities from birth to age 3 and their families. Administered by the Department for Public Health in the Cabinet for Health and Family Services, First Steps offers comprehensive services through community agencies and service disciplines. Children who participate in early intervention have significant improvement in development and learning. Helping to decrease the problems early in a childâ&#x20AC;&#x2122;s development can reduce or prevent costly educational programs in the future. chfs.ky.gov/agencies/dph/dmch/ecdb/Pages/ firststeps.aspx Regional Offices: Barren River District Point of Entry P.O. Box 6499, 380 Suwannee Trail, Bowling Green, Ky., 42103 (270) 901-5749 / (800) 643-6233 Counties served: Allen, Barren, Butler, Edmonson, Hart, Logan, Metcalfe, Monroe, Simpson, Warren Big Sandy District Point of Entry 104 South Front Ave., Prestonsburg, Ky., 41653 (606) 886-4417 / (800) 230-6011 Counties served: Floyd, Johnson, Magoffin, Martin, Pike Buffalo Trace District Point of Entry 420 E. Second St., Maysville, Ky., 41056 (606) 564-3919 / (800) 335-4249 Counties served: Bracken, Fleming, Lewis, Mason, Robertson Cumberland Valley District Point of Entry P.O. Box 568, Corbin, Ky., 40702 (606) 523-0229 / (800) 509-9559 Counties served: Bell, Clay, Harlan, Jackson, Knox, Laurel, Rockcastle, Whitley. FIVCO District Point of Entry 5850 U.S. 60, Box 11 Summit Plaza, Ashland, Ky., 41102 / (606) 929-9155 / (800) 650-1329 Counties served: Boyd, Carter, Elliott, Greenup, Lawrence Gateway District Point of Entry P.O. Box 290, Owingsville, Ky., 40360 (606) 674-3204 / (800) 942-4358 Counties served: Bath, Menifee, Montgomery, Morgan, Rowan Green River District Point of Entry 1501 Breckenridge St., Owensboro, Ky., 42301 (270) 852-2905 / (888) 686-1414 Counties served: Daviess, Hancock, Henderson, McLean, Ohio, Union, Webster Kentuckiana District Point of Entry 312 Whittington Parkway, Suite 020, Louisville, Ky., 40222 / (502) 429-1249 / (800) 422-0087 Counties served: Bullitt, Henry, Jefferson, Oldham, Shelby, Spencer, Trimble Kentucky River District Point of Entry 115 Rockwood Lane, Hazard, Ky., 41701

(606) 439-1325 / (800) 328-1767 Counties served: Breathitt, Knott, Lee, Leslie, Letcher, Owsley, Perry, Wolfe Lake Cumberland District Point of Entry 259 Parkers Mill Road, Somerset, Ky., 42501 (606) 678-2821 / (800) 378-2821 Counties served: Adair, Casey, Clinton, Cumberland, Green, McCreary, Pulaski, Russell, Taylor, Wayne Lincoln Trail District Point of Entry 108 New Glendale Road, P.O. Box 2609, Elizabethtown, Ky., 42702 / (270) 737-5921 / (800) 678-1879 Counties served: Breckinridge, Grayson, Hardin, Larue, Marion, Meade, Nelson, Washington New Vista (formerly Bluegrass) District Point of Entry 343 Waller Ave., Suite 201, Lexington, Ky., 40504 (859) 271-9448 / (800) 454-2764 Counties served: Anderson, Bourbon, Boyle, Clark, Estill, Fayette, Franklin, Garrard, Harrison, Jessamine, Lincoln, Madison, Mercer, Nicholas, Powell, Scott, Woodford Northern Kentucky District Point of Entry North Key: 12 E. 5th St., Newport, Ky., 41071 (859) 308-5963 Counties served: Boone, Campbell, Carroll, Gallatin, Grant, Kenton, Owen, Pendleton Pennyrile District Point of Entry 400A Hammond Plaza, Hopkinsville, Ky., 42240 (270) 886-5186 / (877) 473-7766 Counties served: Caldwell, Christian, Crittenden, Hopkins, Lyon, Muhlenberg, Todd, Trigg Purchase District Point of Entry 425 Broadway, Suite 204, Paducah, Ky., 42001 (270) 442-6223 / (800) 648-6599 Counties served: Ballard, Carlisle, Calloway, Fulton, Graves, Hickman, Livingston, Marshall, McCracken. Kentucky IMPACT Program 275 E. Main St., 4W-G, Frankfort Ky., 40621 (502) 564-4456 Kentucky IMPACT is a statewide program that coordinates services for children with severe emotional disabilities and their families. IMPACT serves children and youth of all ages. The Kentucky Office of Vocational Rehabilitation 275 E. Main St., Mail Stop 2E-K, Frankfort, Ky., 40621 (502) 564-4440 The Kentucky Office of Vocational Rehabilitation (OVR) assists Kentuckians with disabilities to achieve suitable employment and independence. The organization recognizes and respects the contribution of all individuals as a necessary and vital part of a productive society. www.ovr.ky.gov Regional Offices: Ashland (606) 920-2338 Bluegrass (859) 246-2537 / (888) 211-7276 Bowling Green (270) 746-7489 / (800) 443-6055 (800) 246-6193 (TTY) Carl D. Perkins Center (800) 443-2187 Covington (859) 292-6513 / (866) 380-3450 Danville (859) 239-7885 / (800) 795-8481 Elizabethtown (270) 766-5121 / (866) 883-0001 Florence (859) 371-9450 / (877) 371-9451

Resource List 2019 Lexington (859) 246-2185 / (859) 246-2540 (877) 246-2185 Louisville (502) 595-4173 / (800) 456-3334 Middletown (502) 426-0145 / (866) 304-1958 Owensboro (270) 687-7308 / (800) 241-5821 (TTY) (888) 640-2811 West Kentucky (270) 575-7304 West Liberty (606) 743-7978 / (606) 743-7551 (800) 440-2530 Whitesburg (606) 633-2568 Kentucky Transitions (Money Follows the Person Demonstration Grant) 275 East Main St. 6 W-B, Frankfort, Ky., 40621 (502) 564-0330 / (877) 564-0330 Using funding from the Money Follows the Person Demonstration Grant, the Department for Medicaid Services assists eligible individuals to transition from institutional settings back into the community. resources.hdiuk.org/directory/ky-transitions-moneyfollows-the-person-demonstration-grant/ Kentucky Department for Medicaid Services Division of Community Alternatives If you are elderly, have a physical, intellectual or developmental disability or are ventilator dependent, you may qualify for Medicaid waiver services. Known as 1915(c) Home- and Community-Based Services waivers, these services provide the support you need to continue to live at home. chfs.ky.gov/agencies/dms/dca/Pages/default.aspx Medicaid Waiver Provider Directory The Provider Directory is maintained by the Division of Developmental & Intellectual Disabilities. Contact information for provider agencies certified to provide SCL/Michelle P. Medicaid waiver services may be accessed in this interactive map. https://dbhdid.ky.gov/ProviderDirectory/ProviderDirectory. aspx Michelle P. Waiver Division of Community Alternatives 275 E. Main St. 6 W-B, Frankfort, Ky., 40621 (855) 459-6328 / (502) 564-1647 / (502) 564-4527 A Medicaid program that helps people live in the community or return to the community after living in an institution. The Michelle P. Waiver is for anyone with an intellectual or a developmental disability who is eligible to receive services at an Intermediate Care Facility. chfs.ky.gov/agencies/dms/dca/Pages/default.aspx Pathways to Careers and Special Programs 300 Sower Blvd., Frankfort, Ky., 40601 (502) 564-4770 Donnalie Stratton, Program Consultant education.ky.gov Personal Care Attendant Program Department for Aging and Independent Living 275 E. Main St. 3E-E, Frankfort, Ky., 40621 (502) 564-6930 Ext 3477 Attendant services are provided for people 18 and older with functional loss of two or more limbs and

who have the ability to hire and supervise an attendant. Services include assistance with personal care, housekeeping, shopping, travel, self-care procedures, meal preparation, and other daily activities. chfs.ky.gov/agencies/dail/Pages/pcap.aspx Social Security Administration (800) 772-1213 / www.ssa.gov Regional Offices: Ashland 1405 Greenup Ave., Room 132, Ashland, Ky., 41101 Bowling Green 2724 Chandler Drive, Bowling Green, Ky., 42104 Campbellsville 101 Hiestand Farm Road, Campbellsville, Ky., 42718 Corbin 159 Future Drive, Corbin, Ky., 40701 Danville 103 Belinda Blvd., Danville, Ky., 40422 Elizabethtown 591 Westport Road, Elizabethtown, Ky., 42701 Florence 7 Youell St., Florence, Ky., 41042 Frankfort 140 Flynn Ave., Frankfort, Ky., 40601 Hazard 122 Reynolds Lane, Hazard, Ky., 41701 Hopkinsville 1650 Marie Drive, Hopkinsville, Ky., 42240 Jackson 850 KY-15 N., Jackson, Ky., 41339 Lexington 2241 Buena Vista Road, Suite 110, Lexington, Ky., 40505 Louisville 10503 Timberwood Circle, Suite 50, Louisville, Ky., 40223 Madisonville 4431 Hanson Road, Madisonville, Ky., 42431 Maysville 509 Market Place Drive, Maysville, Ky., 41056 Owensboro 4532 Lucky Strike Loop, Owensboro, Ky., 42303 Paducah 125 Brett Chase Road, Paducah, Ky., 42003 Prestonsburg 1897 Ky. Route 321, Prestonsburg, Ky., 41653 Richmond 1060 Gibson Bay Drive, Richmond, Ky., 40475 Somerset 3975 US-27, Somerset, Ky., 42501 Supports for Community Living Waiver Branch 275 E. Main Street, 4CF, Frankfort, Ky., 40621 (502) 564-7700 The Supports for Community Living (SCL) Waiver Branch of the Division of Developmental and Intellectual Disabilities (DDID) provides staff support for and oversight of the Supports for Community Living waiver program. The SCL waiver program is a home- and community-based program funded by the Kentucky Department for Medicaid Services and administered by DDID. dbhdid.ky.gov/ddid/scl.aspx

ADOPTION AND FOSTERING

Adoption Support for Kentucky UK College of Social Work 1500 Bull Lea Road Ste. 194, Lexington Ky., 40511 (859) 257-7361 / adoptky@uky.edu Adoption Support for Kentucky (ASK) is a statewide program that specializes in the utilization of support groups to offer pre- and post-adoptive support and services to both foster and adoptive parents. ASK provides the opportunity to share resources, suggestions, frustrations and successes with those who share this unique experience. ASK strives to prevent pre-adoption disruption and post-adoption dissolution through peerled support and training. There is no cost and any and all are welcome. www.uky.edu/trc/ask The Bair Foundation 2393 Alumni Drive, Suite 205, Lexington, Ky., 40517 (859) 519-3273 Bair Foundation is a therapeutic Foster Care agency in the process of getting the certification for caring for medically complex children. Bair Foundation foster care families are specially trained to care for children with medical and behavioral needs. Bair Foundation provides trauma-informed care for all children, helping them face challenging behaviors, and provides them with stable environments while focusing on the child’s strengths. www.bair.org Benchmark Family Services Therapeutic Foster Care, Kentucky Administrative Office 118 Dennis Drive, Lexington, Ky., 40503 (859) 899-9515 Provides quality out-of-home placements for youth in need by working with referring agencies to guarantee the support, treatment and care they deserve. Serves children with emotional, mental and physical disabilities along with youth who have been severely neglected or abused. Therapeutic services include training of foster families. Benchmark Family Services has offices in Berea, Bowling Green, Columbia, Corbin, Elizabethtown, Florence, Hazard, Lexington, Louisville, Madisonville, Morehead, Owensboro, Owenton, Paducah, Prestonsburg, and Somerset. www.benchmarkfamilyservices.org Children’s Home of Cincinnati 5050 Madison Road, Cincinnati, Ohio, 45227 (513) 272-2800 / (513) 808-9632 The Children’s Home of Cincinnati is a private, nonprofit social service agency that improves the lives of children and their families through services in four areas: adoption, early childhood, education and mental health. The Home serves children of all ages and their families, including adoptive children, new parents needing support and guidance, children with special education needs, and children with mental health diagnoses. www.thechildrenshomecinti.org

2019 Exceptional Family KY

Resource List 2019 Key Assets Kentucky 961 Beasley St., Suite 170, Lexington, Ky., 40509 (859) 226-5022 Key Assets provides support for specialized foster parents who care for children with developmental delays or autism. / www.keyassetskentucky.com Special Needs Adoption Program 275 East Main St. 3C-E, Frankfort, Ky., 40621 (800) 928-4303 DCBS/Adoption Service prdweb.chfs.ky.gov/kape/index.aspx

THE ARTS All Abilities Drama Camp Jessamine Early Learning Village 851 Wilmore Road, Nicholasville, Ky., 40356 aadramacamp@gmail.com Embracing the gifts of all campers through the arts by celebrating difference, skills, personalities and abilities. www.allabilitiescamp.blogspot.com Allegro Dance Project (715) 252-6137 Based in Lexington, Allegro Dance Project is a non-profit contemporary dance company specializing in Inclusive dance outreach for children with Down Syndrome, Autism Spectrum Disorder and other specific needs. www.allegrodanceproject.org Latitude Artist Community 734 National Ave., Suite 110, Lexington, Ky., 40502 (859) 806-0195 Latitude is an art studio that serves all people, with an emphasis on those who are considered to have a disability. The multimodal activities, workshops and community outreach events form a framework that

ASSISTIVE TECHNOLOGY

encourages us to recognize our own lifeâ&#x20AC;&#x2122;s narrative, and to then choose ways in which we may contribute to the well-being of our community. www.latitude-arts.com Lexington Childrenâ&#x20AC;&#x2122;s Theatre 418 W. Short St., Lexington, Ky., 40507 (859) 254-4546 LCT is committed to creating an environment where everyone feels welcome to enjoy the magic of theatre. Available are sensory friendly performances, designed to be a safe environment where young people with sensory sensitivities or disabilities, first-time theatre goers, young children, and their friends and family are free to speak, respond and move around the seating area in reaction to the story. ASL interpretation and audio description are also available. www.lctonstage.org/tickets/access-at-lct/ The SHINE House 402 North Main Street, Somerset, Ky., 42501 (606) 416-5380 The SHINE House is a nonprofit community arts center whose goal is to provide instruction in a variety of visual arts forms in a creative educational space developed with inclusion in mind. www.theshinehouse.com VSA Arts of Kentucky P.O. Box 3320, Bowling Green, Ky., 42102 (270) 904-7019 Nonprofit organization dedicated to providing inclusive arts and education programs for children, youth and adults with disabilities, in addition to professional development for artists and teachers in schools and communities statewide. Offers an under-served population equal opportunity to explore the arts in a way that is fully accessible. Through participatory involvement with trained professionals and volunteers, people with disabilities learn new creative and social skills that open doors to new opportunities www.vsartsky.org

Carl D. Perkins Vocational Training Center 5659 Main St., Thelma, Ky., 41260 (606) 788-7080 The mission of the Carl D. Perkins Vocational Training Center is that persons will achieve sustainable competitive integrated employment, maximize independence, and yet gain self-respect through the provision of comprehensive services. Consumers may live on our campus in dormitory housing or can commute to the Perkins Center each day they are scheduled for classes and/or therapy. www.cdpvtc.ky.gov Enabling Technologies of Kentuckiana (enTECH) at Spalding University 812 S. Second St., Louisville, Ky., 40203 (502) 992-2448 / www.entech.spalding.edu HDI Center for Assistive Technology Services 2358 Nicholasville Road, Suite 180 Lexington, Ky., 40503 / (859) 218-7979 (CATS) is a non-profit, grassroots organization that assists individuals who have disabilities, their families and service providers in connecting with various technologies and services that provide the gateway to greater independence, productivity and quality of life. CATS is a member of the Alliance for Technology Access, The Eastern Regional Center for the Kentucky Assistive Technology Service (KATS) Network. www.hdi.uky.edu/HDICATS www.facebook.com/HDICATS

KATS (Ky. Assistive Technology Service Network Coordinating Center) 8412 Westport Road, Louisville, Ky., 40242 (800) 327-5287 / Info@katsnet.org The Kentucky Assistive Technology Locator is a free service of the KATS Network that connects Kentuckians to the AT devices they need to live independently. By registering for an account, you can borrow devices to try, find used devices for free or low-cost, sell used devices, give ur goal at Exceptional Family Magazine is to provide a compreaway devices or place want ads for hensive, statewide list of resources for folks with disabilities. devices you need. www.katsnet.org Since we first published this magazine in 2009, we have updated

Are We Missing Resources?

and expanded our list of resources many times. Help us continue to make this Resource Directory as accurate and thorough as possible. If you know of resources in the state or in your part of Kentucky that need to be included, please let us know. Thanks for your assistance and we look forward to hearing from you. To add to this Resource Directory, simply contact Editor John Lynch by phone (859) 223-1765 or email at john@lexingtonfamily.com. n 26

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KATS Project CARAT (800) 327-5287 / Sheila.levy@ ky.gov A program of KATS, CARAT enables under-served individuals with disabilities in the Appalachian region of Kentucky by collecting, refurbishing and redistributing assistive technology and durable medical equipment through a collaborative network of partners. The

Resource List 2019 goal of Project CARAT is to make Assistive Technology and Durable Medical Equipment more accessible to those who need it in rural Kentucky. In order to make this happen, Project CARAT is partnering with agencies across the state. To request equipment or for donation information, call the ProjectCARAT Hotline at (800) 327-5287. / www.katsnet.org/projectCARAT Kentucky Assistive Technology Loan Corporation 275 East Main St., Mail Drop 2 E-K Frankfort, Ky., 40621 / (877) 675-0195 The Kentucky Assistive Technology Loan Corporation (KATLC) offers low interest loans for qualified applicants with disabilities for assistive technology. Working with its lending partner, Fifth Third Bank, KATLC can provide loans for modified vehicles, hearing aids, adapted computers, mobility devices, augmentative communication devices or any other type of equipment or home modification that will improve the quality of life or increase the independence of Kentuckians with disabilities. / www.katsnet.org Kentucky Department of Education Exceptional Children 300 Sower Blvd., 5th Floor, Frankfort, Ky., 40601 (502) 564-4770 www.education.ky.gov/specialed/Pages/default.aspx Kentucky Assistive Technology Guidelines 8412 Westport Road, Louisville Ky., 40242 (800) 327-5287 www.katsnet.org/resources/web-accessibility/ky-ait-law/ Redwood Assistive Technology Center 71 Orphanage Road, Ft. Mitchell, Ky., 41017 (800) 728-9807 / www.redwoodnky.org Western Kentucky Assistive Technology Center Wendell Foster’s Campus 815 Triplett St., Owensboro, Ky., 42302 / (877) 932-2678 https://wendellfoster.org

AUTISM The Kelly Autism Program Western Kentucky University Clinical Education Complex, 104 Alumni Ave., Bowling Green, Ky., 42101 (270) 745-4KAP (4527) www.wku.edu/kellyautismprogram Wendell Foster’s Kelly Autism Program 815 Triplett St. / P.O. Box 1668, Owensboro, Ky., 42303 (877) 932-2678 https://wendellfoster.org Autism Society of Kentucky Bluegrass P.O. Box 24212, Lexington, Ky., 40524-241 (859) 299-9000 / saraspragens@gmail.com Established in 1991 and a chapter of ASA, this all volunteer, parent, caregiver and self-advocates advocacy group serves Central and Eastern Kentucky.

Its mission is to provide education, advocacy and support to families, educators and health providers affected by ASD. / www.asbg.org Autism Society of Greater Cincinnati P.O. Box 75, Milford, Ohio, 45150 (513) 561-2300 / info@autismcincy.org ASGC works to promote awareness and education about autism. ASGC provides information packets, support groups for families and individuals, newsletters and public speakers. www.autismcincy.org Autism Society of Kentuckiana P.O. Box 21895, Louisville, Ky., 40221-0895 Rebecca Thompson, Kentucky Resident Contact (502) 263-5708 www.ask-lou.org Families for Effective Autism Treatment 1100 E. Market St., Louisville, Ky., 40206 (502) 596-1258 www.featoflouisville.org Hopebridge 1300 E. New Circle Road, Suite 150, Lexington, Ky. 40505 / (859) 685-1019 5215 Commerce Crossings Drive, Louisville, Ky., 40229 / (502) 251-7002 2427 Russellville Road, Bowling Green, Ky., 42101 (270) 936-7472 Provides a full range of professional services in one location for a child with Autism Spectrum Disorder and other developmental delays. www.hopebridge.com Kentucky Autism Training Center at Kosair Charities University of Louisville 1405 E. Burnett Ave., Louisville, Ky., 40217 (502) 852-4631 / (800) 334-8635 ext. 852-4631 www.louisville.edu/education/kyautismtraining PACT: Police Autism Community Training PACT is a non-profit program aimed at educating and raising autism awareness within Kentucky’s law enforcement departments. PACT seeks to increase awareness and knowledge through a classroom session focused on improving miscommunication among law enforcement officials and individuals with autism. www.pactautism.com Weisskopf Child Evaluation Center 411 E. Chestnut, Louisville, Ky., 40202 (502) 588-0850 Provides center-based and outreach diagnostic evaluations and treatment to infants and children with, or at risk for, developmental disabilities, congenital anomalies, genetic disorders, autism, organic behavior disorders (ADHD) and learning disabilities, as well as genetic counseling to adults. louisville.edu/medicine/departments/pediatrics/ divisions/weisskopf

CAMPS AND RECREATIONAL ACTIVITIES Bowling Green Parks and Recreation Special Populations Division 225 E. Third Ave., Bowling Green, Ky., 42101 (270) 393-3484 Programs and services offered provide all individuals, regardless of their ability level, opportunities for recreation and leisure. People with and without disabilities participate side by side in an inclusive environment. Activities include Bowling Green Special Olympics (softball, basketball, flag football, bowling, cheerleading, swimming, and track and field), adapted sports (wheelchair basketball, wheelchair tennis and goalball), and social gatherings (holiday parties, movie nights, dances and more). www2.bgky.org/bgpr/specialpopulation.php/ Camp Discovery A three-day, all-female camp designed to teach women in wheelchairs physical fitness and how to form lasting relationships. Sports such as wheelchair tennis, SCUBA diving and horseback riding as well as whole body wellness such as art therapy, nutrition classes, cooking and massage are all incorporated throughout the weekend. maysvilleinitiatives.com/camp-discovery/ Camp Hendon 1640 Lyndon Farm Court, Suite 108, Louisville, Ky., 40223 / (502) 272-2370 Camp Hendon is an all-volunteer camp for children (ages 8-17) with Type I diabetes. The camp provides two separate week-long residential camping sessions to empower children to take control of their journey with diabetes. / www.camphendon.org Cassidy’s Cause Therapeutic Riding Academy 6075 Clinton Road, Paducah, Ky., 42001 (270) 554-4040 / www.cassidyscause.org The Center for Courageous Kids 1501 Burnley Road, Scottsville, Ky., 42164 (270) 618-2900 / info@courageouskids.org The Center for Courageous Kids (CCK) is a medical camp where children with disabilities or life-threatening illnesses will experience what a real camp is like, in a setting that is physically safe and medically sound. The camp offers children who are typically watching rather than participating the opportunity to fully engage in camp activities that focus on their abilities. Illness specific summer camps for children (7-15) and illness specific family weekend retreats, free of charge. www.courageouskids.org Central Kentucky Riding for Hope P.O. Box 13155, Lexington, Ky., 40583 (859) 231-7066 / lauriston@ckrh.org

2019 Exceptional Family KY

Resource List 2019 Operated at the Kentucky Horse Park Under the guidance of trained teachers, volunteers and medical personnel, disabilities are challenged and new abilities are created. The program has proved successful in helping people with disabilities develop self-esteem, confidence, coordination and a sense of achievement while learning horsemanship and track riding principles. www.ckrh.org Easter Seals Adaptive Recreation 2050 Versailles Road, Lexington, Ky., 40504 (859) 246-8816 / cindy.jacobelli@cardinalhill.org Promotes healthy and active lifestyles for people with physical disabilities through education, exposure to adaptive equipment and adaptive recreation experiences in the community. www.cardinalhill.org/programs/adaptive-recreation Kamp KESSA 758 Beechridge Road, Frankfort, Ky., 40601 (502) 376-4367 A non-profit resident camp serving populations who are at-risk and have special needs. Kamp KESSA provides adventure education and treatment programs utilizing horses and the wilderness. www.cedarfire.net Legacy All Sports 261 Ruccio Way, Lexington, Ky., 40503 (859) 977-8862 Carousel Kidz is a program to meet your child’s special needs with one-on-one gymnastics lessons. www.legacyallsports.com Lexington Parks and Recreation Therapeutic Recreation 469 Parkway Dr., Lexington, Ky., 40504 (859) 288-2900 Therapeutic Recreation programs provide opportunities for individuals with disabilities to enjoy activities through recreation, leisure and play, and to showcase their talents and abilities. Programs are designed to enhance the overall health, wellness and social needs of individuals with disabilities. A variety of recreation and sport opportunities are available such as adult fitness, adaptive aquatics, archery, Miracle League Baseball, cooking, summer camps, drama, hand drumming, art, day-trip outings, overnight excursions, bowling, horsemanship, dance class, special events, Zumba, yoga and more. www.lexingtonky.gov/tr Louisville Parks and Recreation Adaptive and Inclusive Recreation 1300 Heafer Road, Louisville, Ky., 40223 (502) 456-8148 Offers adaptive sports and recreation for people in Jefferson and outlying counties. Programs include the state’s only Paralympics Sports Club, plus health and wellness classes such as nutrition, yoga, and exercise and strength training classes. Sports offerings include wheelchair basketball, wheelchair tennis, bocce ball, pickle ball and wheelchair pickle ball, archery, adaptive golf, goal ball and beep baseball for people with low or no vision. Clinics are offered in track & field, wheelchair

www.lexingtonfamily.com

lacrosse, sled hockey and more. Louisville is also home to the state wheelchair basketball team, Louisville Spokes & Spires. https://louisvilleky.gov/government/parks/ LYSA’s TOPSoccer Program 404 Sporting Court, Lexington, Ky., 40503 (859) 223-5632 TOPSoccer (The Outreach Program for Soccer) is a community-based soccer program designed to meet the needs of athletes with physical, developmental, and/or intellectual disabilities. Player participation and development are key elements of the program. TOPSoccer is designed to improve the overall fitness, self-esteem and social skills of your athlete. www.lysa.org/topsoccer Special Olympics Kentucky 105 Lakeview Court, Frankfort, Ky., 40601 (502) 695-8222 / (800) 633-7403 Special Olympics is the world’s largest program of sports training and competition for children and adults with intellectual disabilities. www.soky.org Toyota Bluegrass Miracle League Central Lexington YMCA 239 East High Street, Lexington, Ky. 40507 (859) 254-9622 A baseball program for youth and adults with special needs. The leagues play on a specially designed field located at Shillito Park in Lexington. The all-accessible field is the only one of its kind in Kentucky with leagues in both spring and fall. www.facebook.com/pages/category/Disability-Service/ Toyota-Bluegrass-Miracle-League-59145356197 YMCA of Central Kentucky (859) 254-9622 / www.ymcacky.org

DOWN SYNDROME Down Syndrome Association of Central Kentucky 1050 Chinoe Road, Suite 204, Lexington, Ky., 40502 (859) 494-7809 DSACK exists to celebrate the Down syndrome community, support individuals with Down syndrome and their families, educate the Central Kentucky community and assist in local and national research efforts. DSACK celebrates that all people are beautiful, capable and loved. Serves Central and Eastern Kentucky. www.dsack.org Down Syndrome Association of Greater Cincinnati 4623 Wesley Ave., Suite A, Cincinnati, Ohio, 45212 (513) 761-5400 By providing families with support, inspiration and information, the Association helps individuals with Down syndrome achieve their maximum potential. Including individuals with Down syndrome in neighborhood schools, community activities and the business world benefits individuals and their respective communities. www.dsagc.com

Green River Area Down Syndrome Association Owensboro and surrounding area P.O. Box 2031, Owensboro, Ky., 42302 (270) 681-5313 / info@gradsa.org GRADSA’s mission is to enable families enriched with Down syndrome connection to share resources, build friendships, and advocate together for the future of individuals with Down syndrome. / www.gradsa.org Down Syndrome of Louisville 5001 South Hurstbourne Parkway, Louisville, Ky., 40291 (502) 495 5088 Down Syndrome of Louisville is a non-profit organization founded in 1977 whose mission is to improve the lives of persons with Down syndrome and their families by providing support, information, education, and advocating for their rights and concerns, enabling individuals to reach their full potential. www.downsyndromeoflouisville.org Down Syndrome Association of South Central Kentucky 522 State St., Bowling Green, Ky., 42101 (270) 796-5002 / info@dssky.org www.dssky.org Down Syndrome Association of Western Kentucky P.O. Box 7366, Paducah, Ky., 42002-7366 (270) 559-9026 / upsandowns@dsawk.com DSAWK promotes public awareness and acceptance of individuals with Down syndrome by providing information, resources and support in the community. Generally, meetings are on the 3rd Monday of the month at the Heartland Worship Center in Paducah. www.dsawk.com National Down Syndrome Congress (NDSC) 30 Mansell Court, Suite 108, Roswell, Georgia, 30076 (770) 604-9500 / info@ndsccenter.org The NDSC provides up-to-date information on topics of interest to people with Down syndrome, family members, friends, professionals and interested others. The Center works to promote the availability of and accessibility to a full range of opportunities and/or resources that meet individual and family needs. www.ndsccenter.org National Down Syndrome Society (NDSS) (800) 221-4602 / info@ndss.org The mission of the National Down Syndrome Society is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome. www.ndss.org

EDUCATION

The Council for Exceptional Children 2900 Crystal Drive, Suite 100 Arlington, Virginia, 22202-3557 (888) 232-7733 / TTY (866) 915-5000 The largest international professional organization

Resource List 2019 dedicated to improving educational outcomes for individuals with exceptionalities, students with disabilities, and/or the gifted. / www.cec.sped.org EKU Center for Student Accessibility 521 Lancaster Ave., Whitlock Building, Room 361 CPO 66, Richmond, Ky., 40475 (859) 622-2933 Provides equal access to University resources, coursework, programs and activities by serving qualified individuals, and advocating for equal access for all individuals who qualify. www.accessibility.eku.edu Kentucky Adult Education Council on Postsecondary Education 1024 Capital Center Drive, Suite 250, Frankfort, Ky., 40601 (502) 573-5114 V/TTY / www.kyae.ky.gov Kentucky Department of Education: Division of Exceptional Services 300 Sower Blvd., 5th Floor, Frankfort, Ky., 40601 (502) 564-4970 Oversees funding, special education programs, data collection, personnel development, monitoring of school districts, curriculum development and more. www.education.ky.gov/specialed/excep/Pages/default.aspx Kentucky PTA 148 Consumer Lane, Frankfort Ky., 40601 or P.O. Box 654, Frankfort, Ky., 40602-0654 (502) 226-6607 / kentuckypta@bellsouth.net www.kypta.org Kentucky State Department of Education 300 Sower Blvd., Frankfort, Ky., 40601 Rebecca Blessing / (502) 564-3141 education.ky.gov Kentucky State University Disability Resource Center 400 E. Main St., Frankfort, Ky., 40601 (502) 597-6041 / phillip.clay@kysu.edu Hathaway Hall Office #107 www.kysu.edu Morehead State University Disability Service Adron Doran University Center, Suite 202, Morehead, Ky., 40351 (606) 783-5188 / e.day@moreheadstate.edu This office ensures that the universityâ&#x20AC;&#x2122;s programs, activities, services and the campus itself are accessible to all students and visitors. www.moreheadstate.edu/disability Northern Kentucky University Office of Disability Services Student Union, Suite 303, Highland Heights, Ky., 41099 / (859) 572-5282 NKU provides learner-centered assistance and resources to students with disabilities in their transition to Northern Kentucky University. inside.nku.edu/disability.html

Programs for Children with Disabilities 300 Sower Blvd., Frankfort, Ky., 40601 (502) 564-4970 Division of Extended Learning Office of Academic and Professional Development (Ages 3 through 5) . education.ky.gov Public School Parent Resource Centers, Cabinet for Health and Family Services 275 E. Main St. Frankfort, Ky., 40621 (502) 564-4986 Nearly all public schools in the state have Parent Resource Centers, which are divided into 11 Regions. The mission is to remove nonacademic barriers to learning as a means to enhance student academic success. The Centers are also places where families of children with special needs can receive parent-toparent counseling on special education issues and concerns. Families are welcome to visit and preview materials from the lending library, which has many books, videotapes and periodicals related to disability. The staff can connect parents to resources and support groups and also help with online research. chfs.ky.gov/agencies/dfrcvs/dfrysc/Documents/ AdmininstratorsGuidebook.pdf Regional Offices: Region 1: Program Manager Teresa Dixon teresa.dixon@ky.gov Counties Served: Ballard, Caldwell, Calloway, Carlisle, Christian, Crittenden, Graves, Fulton, Hickman, Hopkins, Livingston, Lyon, Marshall, McCracken, Muhlenberg, Todd, Trigg. Plus: Dawson Springs Independent, Fulton Independent, Mayfield Independent, Murray Independent, Paducah Independent. Region 2: Program Manager Dianne M. Arnett diannem.arnett@ky.gov Counties Served: Butler, Daviess, Hancock, Henderson, Logan, McLean, Ohio, Simpson, Union, Warren, Webster Region 3: Program Manager Naela Imanyara and Andrea Pike-Goff naela.imanyara@ky.gov / andrea.pikegoff@ky.gov County Served: Jefferson Region 4: Program Manager Betty Pennington betty.pennington@ky.gov Counties Served: Boone, Campbell, Carroll, Gallatin, Henry, Kenton, Oldham, Owen, Shelby, Trimble Region 5: Program Manager Paul Cookendorfer paul.cookendorfer@ky.gov Counties Served: Anderson, Bourbon, Clark, Franklin, Grant, Harrison, Jessamine, Madison, Mercer, Nicholas, Pendleton, Scott, Woodford Region 6: Program Manager Barbara Pettus barbara.pettus@ky.gov Counties Served: Bullitt, Boyle, Casey, Clinton, Cumberland, Garrard, Lincoln, Marion, McCreary, Nelson, Pulaski, Russell, Spencer, Taylor, Washington, Wayne Region 7: Program Manager Doug Jones wdouglas.jones@ky.gov Counties Served: Bath, Boyd, Bracken, Carter, Elliott, Fleming, Greenup, Johnson, Lawrence, Lewis, Martin, Mason, Menifee, Montgomery, Morgan, Robertson, Rowan

Region 8: Program Manager Teresa Combs teresa.combs@ky.gov Counties Served: Breathitt, Floyd, Knott, Lee, Leslie, Letcher, Owsley, Perry, Pike, Wolfe Region 9: Program Manager Russell Jones russell.jones@ky.gov Counties Served: Bell, Clay, Harlan, Jackson, Knox, Laurel, Rockcastle, Whitley Region 10: Program Manager Lisa Gay lisa.gay@ky.gov County Served: Fayette Region 11: Program Manager Sherrie Baughn Martin / sherrie.martin@ky.gov Counties Served: Adair, Allen, Barren, Breckinridge, Edmonson, Grayson, Green, Hardin, Hart, Larue, Meade, Metcalfe, Monroe. Special Needs Homeschooling A blog written by a mother with special needs children, the author provides resources she has found helpful in homeschooling her children. www.specialneedshomeschooling.com University of Kentucky Disability Resource Center 725 Rose St., Multidisciplinary Science Building Suite 407, Lexington, Ky., 40536 (859) 257-2754 Resources for prospective and current students and parents. www.uky.edu/StudentAffairs/DisabilityResourceCenter University of Louisville Disability Resource Center 119 Stevenson Hall, Louisville, Ky., 40292 (502) 852-6938 / askdrc@louisville.edu UofL provides support for students with documented disabilities by promoting equal access to all programs and services. / www.louisville.edu/disability Western Kentucky University 1906 College Heights Blvd., Bowling Green, Ky., 42101 Student Accessibility Resource Center Downing Student Union, First Floor, 1074 (270) 745-5004 WKU coordinates services and accommodations for students with documented disabilities. www.wku.edu/sarc

EPILEPSY Epilepsy Council of Greater Cincinnati 895 Central Ave., Suite 550, Cincinnati, Ohio, 45202 (513) 721-2905 / (877) 804-2241 eao@epilepsy-ohio.org / www.epilepsy-ohio.org Epilepsy Foundation of Kentuckiana 982 Eastern Parkway, Louisville, Ky., 40217 (502) 637-4440 / (866) 275-1078 www.efky.org

2019 Exceptional Family KY

Resource List 2019

LEARNING DIFFERENCES Dyslexia Association of the Pennyrile 538 A Noel Ave., Hopkinsville, Ky., 42241 (270) 885-5804 / www.hopkinsvilledyslexia.org The International Dyslexia Assn. - Ky. Branch P.O. Box 22006, Lexington, Ky., 40588 (502)-783-7323 / ky.dyslexiaida.org LD Online The world’s leading website on learning disabilities and ADHD. www.ldonline.org/ldresources/local_org/kentucky Learning Disabilities Association of Kentucky 2210 Goldsmith Lane, Suite 118, Louisville, Ky., 40218 (502) 473-1256 / (877) 587-1256 This comprehensive mental health professional program includes the “co-morbid” disorders often found with individuals with learning disabilities, including Anxiety, Depression, Obsessive Compulsive Disorder, Anger Control/Bipolar Disorder, and ADHD. www.LDAofky.org Ohio Valley Branch of the International Dyslexia Association OVBIDAtutorline@yahoo.com A non-profit, scientific and educational organization dedicated to the study and treatment of dyslexia. This Branch was formed to increase public awareness of dyslexia in the Southern Ohio, Southeast Indiana, Kentucky and Huntington, West Virginia areas. ohv.dyslexiaida.org/ Progressive Educational Program, Inc. Cress Certified 212 Venture Way, Somerset, Ky., 42503 (606) 677-2514 Dyslexia Tester. Specializing in tutoring children with Dyslexia. www.progressiveeducationalprogram.com Wilson Pediatric Therapy 401 Lewis Hargett Circle, Suite 120, Lexington, Ky., 40503 (859) 475-4305 / (859) 899-7323 Working with children with dyslexia and other learning differences. / www.wilsonpediatric.com

LEGAL & FUTURE’S PLANNING Attorney Karen L. Perch 2333 Alexandria Drive, Lexington, Ky., 40504 (859) 224-0513 Karen Perch and her staff are dedicated to helping clients with their legal matters regarding Wills, Living Wills,

www.lexingtonfamily.com

Powers of Attorney, Trusts, including Special Needs Trusts, Qualifying Income Trusts (Miller Trusts) and Family Trusts and Estate Administration. www.perchlaw.com

of Kentuckians with disabilities through legally based individual and systemic advocacy and education. Staff includes professional advocates and attorneys. www.kypa.net

Attorney Robert McClelland, LLM, CELA McClelland & Associates, PLLC, 1795 Alysheba Way, Suite 2102, Lexington, Ky., 40509 (859) 543-0061 / (800) 773-4040 Robert L. McClelland is a certified elder law attorney, special needs trustee and guardian with Elder Law Lexington, the firm of McClelland & Associates, PLLC. He is a member of the Special Needs Alliance, a national alliance of special needs attorneys who focus their practice on benefits planning and caring for those with family members who have special needs. www.elderlawlexington.com

Life Plan of Kentucky, Inc. 230 Lexington Green Circle, Suite 120, Lexington, Ky., 40503 / (859) 523-2323 Life Plan is a pooled special needs trust serving people with disabilities and their families in Kentucky who have countable resources in excess of $2000.00 and need to maintain their eligibility for Supplemental Security Income (SSI) or Medicaid. People can open an account with Life Plan where the funds can be professionally managed and then requests can be made for expenses that improve the quality of the person’s life. Life Plan provides Trustee services for both individuals with disabilities as well as family members who wish to plan for the future. www.lifeplanofky.org

Children’s Law Center Covington Office: 1002 Russell St., Covington, Ky., 41011 / (859) 431-3313 / info@childrenslawky.org Lexington Office: c/o Imani Family Life Center 215 W. Short St., Suite 205, Lexington, Ky., 40507 (859) 253-3353 / info@childrenslawky.org Provides free legal services for children with educational disabilities, and performs research and policy work, training and education in this area. www.childrenslawky.org Court Appointed Special Advocates for Children (CASA) Kentucky CASA Network 1640 Lyndon Farm Court, Suite 108, Louisville, Ky., 40223 (502) 238-2154 CASA volunteers are everyday citizens appointed by judges to advocate for the safety and well-being of abused and neglected children. Last year in Kentucky, more than 800 CASA volunteers advocated for the best interest of nearly 3,000 children in Kentucky. CASA has 20 offices throughout the state. To locate one in your area, visit the web site below. www.kentuckycasanetwork.org Kentucky Division of Protection and Permanency 275 E. Main St., 3E-A, Frankfort, Ky., 40621 (502) 564-6852 / Fax (502) 564-4653 If you believe a child is being abused, neglected or is dependent, call the Protection and Permanency office in your county or the Toll Free Child Protection Hot Line. 1-877-KYSAFE1 or 1-877-597-2331. chfs.ky.gov/agencies/dcbs/dpp/Pages/default.aspx Kentucky Office of Victims Advocacy 1024 Capital Center Drive, Suite 200, Frankfort, Ky., 40601 / (502) 696-5312 The Office of Victims Advocacy works to ensure crime victims are treated with respect and dignity as their case proceeds through the criminal justice system. www.ag.ky.gov/about/branches/OVA Kentucky Protection & Advocacy 5 Millcreek Park, Frankfort, Ky., 40601 (800) 372-2988 / (502) 564-2967 The mission is to protect and promote the rights

MEDICAL AND THERAPY SERVICE PROVIDERS Associates in Pediatric Therapy Louisville Area: (502) 633-1007 Lexington Area: (859) 899-2022 Indiana Area: (812) 542-2771 Bowling Green Area: (270) 467-7700 APT’s unique appeal is that it offers a family approach with multiple pediatric services including Occupational Therapy, Speech Therapy, Physical Therapy, Developmental Intervention and Audiology to the patient and family in a team approach. APT strives to provide therapy in a variety of locations that are appealing to the patient and family. www.kidtherapy.org The Kid SpOt Center (Pediatric Therapy) Locations 50 Gene Cash Road, Campbellsville, Ky., 42718 (270) 465-SPOT (465-7768) 529 Westport Road, Elizabethtown, Ky., 42701 (270) 763-8225 944 Fields Drive, Suite 102, Bowling Green, Ky., 42104 (270) 495-1312 200 Tower Circle, Somerset, Ky., 42503 (606) 416-5139 The Kid SpOt Center provides supports to families of children with disabilities. Services include Speech Therapy, Occupational Therapy, Physical Therapy, Positive Behavior Supports, ABA, Mental Health Counseling, Community Living Supports, Social Skills, Targeted Case Management, Medication Management and Neuropsychology Evaluations. www.thekidspotcenter.com. Brain Injury Alliance of Kentucky 7321 New LaGrange Road, Suite 100, Louisville, Ky., 40222 / (502) 493-0609

Resource List 2019 BIAK is committed to serving those affected by brain injury through advocacy, education, prevention, outreach, service and support. www.biak.us Cardinal Hill Rehabilitation Hospital 2050 Versailles Road, Lexington, Ky., 40504 (859) 254-5701 Outpatient Services (859) 367-7125 Home Care (859) 367-7148 cardinalhillhealthsouth.com/ Cincinnati Children’s Hospital Center for Infants and Children with Special Needs Cincinnati Children’s Hospital Medical Center MLC 7009 3333 Burnet Ave., Cincinnati, Ohio, 45229 (513) 636-4200 / TTY (800) 344-2462 www.cincinnatichildrens.org Crohn’s & Colitis Foundation of America Southwest Ohio & Kentucky Chapter 2368 Victory Pkwy, Suite 240, Cincinnati, Ohio, 45206 (513) 772-3550 / (877) 283-7513 swohioandkentucky@crohnscolitisfoundation.org www.crohnscolitisfoundation.org/chapters/ swohioandkentucky Early Periodic Screening Diagnostic and Treatment Special Services (EPSDT) Dept. of Medicaid Services, Children’s Health Services (800) 635-2570 / TTY (800) 775-0296 The EPSDT Screening Program provides routine physicals or well child check-ups for Medicaid eligible children at certain specified ages. EPSDT can also provide speech/language, physical and/or occupation therapy, and specialized durable medical equipment for children who qualify and need those services. chfs.ky.gov/agencies/dms/dpqo/dcmb/Pages/epsdtscreenings.aspx Easter Seals Cardinal Hill 2050 Versailles Road, Lexington, Ky., 40504 (859) 367-7217 Creative Beginnings Child Development Center (859) 246-8815 Cardinal Hill Adult Day Health / (859) 367-7178 HorseAbility / (859) 367-7217 Promotes healthy and active lifestyles for people with physical disabilities through education, exposure to adaptive equipment and adaptive recreation experiences in the community. www.cardinalhill.org Frazier Rehab Institute 220 Abraham Flexner Way, Louisville, Ky., 40202 (502) 582-7400 Known for world-class care in comprehensive acute rehab, Frazier Rehab Institute provides extensive therapy across a number of specialties for inpatient and outpatient rehab needs. www.kentuckyonehealth.org/rehabilitationcarefrazier

Health Point Family Care, Covington 1401 Madison Ave., Covington, Ky., 41011 (859) 655-6100 HealthPoint Family Care’s vision is a community where everyone has access to quality, affordable health care. The mission is to be the best provider of health services through compassion and innovation. www.healthpointfc.org/location/covington/ Horn and Associates in Rehabilitation 2412 Greatstone Point, Lexington, Ky., 40504 4127 Todds Road, Lexington, Ky. 40509 (859) 224-4081 HRA offers assessments and intervention from a multi-disciplinary team including physical therapy, occupational therapy, speech-language pathology, psychology, developmental intervention, social work and case management. HRA provides independent evaluation and intervention services. www.horntherapy.com Kentucky Children’s Hospital University of Kentucky, 800 Rose St., Lexington, Ky., 40536 / (859) 257-1000 / (800) 333-8874 Established in 1957, UK HealthCare consists of the medical, nursing, health sciences, public health, dental and pharmacy patient care activities of the University of Kentucky, and in several off-site locations. www.ukhealthcare.uky.edu/KCH Kids Center Pediatric Therapies 9810 Bluegrass Parkway, Louisville, Ky., 40299 (502) 584-9781 Since 1959, the Kids Center for Pediatric Therapies has been helping children with special needs. Each week the Center sees over 300 children facing challenges such as autism, Down syndrome, spina bifida and cerebral palsy. www.kidscenterky.org The Kidz Club Erlanger: 527 Watson Road, Erlanger, Ky., 41018 (859) 727-0700 Lexington: 2200 Regency Road, Lexington Ky., 40503 / (859) 224-0799 Louisville: 7140 Preston Highway, Louisville, Ky., 40219 / (502) 368-9318 Louisville: 225 N. 25th St., Louisville, Ky., 40212 (502) 365-2426 The Kidz Club is a prescribed pediatric extended care facility that provides skilled nursing care for children who are medically fragile in a daycare setting. Kidz Club children range from having highly complex medical conditions to kids that simply need to be monitored or have medication delivered. The Kidz Club provides educational enrichment, therapy follow-through, field trips and activities in a fun social setting. Transportation can be provided. Medicaid and private insurance accepted. There are no costs to children or their family. www.thekidzclub.com Kraska & Associates, Inc. 437 Lewis Hargett Circle, Suite 120, Lexington, Ky., 40503 / (859) 219-0956

Private practice providing occupational and speech therapy services. Family-centered approach. Areas of specialty include sensory integration, sensory processing disorder, fine motor/handwriting, dyspraxia, autism, Asperger’s, articulation, phonological disorders and reading programs. www.kraskaandassociates.com Marshall Pediatric Therapy 109 Wind Haven Drive, Suite 100, Nicholasville, Ky., 40356 / (859) 224-2273 Offers occupational and speech therapy for Lexington and surrounding counties. The practice accepts EPSDT, most private insurance plans, participates with Kentucky First Steps, and offers payment plans and provides need-based scholarships from birth to age 21. www.mptcares.com Multiple Sclerosis Society Kentucky-Southeast Indiana Chapter 1201 Story Ave., Suite 200, Louisville, Ky., 40206 (502) 451-0014 www.nationalmssociety.org www.nationalmssociety.org/Chapters/KYW/About-thisChapter/Staff NorthKey Community Care 502 Farrell Drive, P.O. Box 2680 513 Madison Ave., Covington, Ky., 41011 (859) 578-3200 / (877) 331-3292 NCC is paving the way to a community that is healthy in mind and spirit in the Cincinnati and Northern Kentucky areas with a comprehensive continuum of mental health, developmental disability and substance abuse care. www.northkey.org Passport Health Plan 5100 Commerce Crossings Drive, Louisville, Ky., 40229 (800) 578-0603 EST / TDD (800) 691-5566 Passport Health Plan is a Medicaid managed care plan that has been coordinating health services to qualified members since 1997. Passport is communitybased and provider-sponsored, and the only non-profit Medicaid health plan available to members in Kentucky. The mission is to “improve the health and quality of life of our members,” which Passport follows every day through exceptional customer service, a large provider network, and case and disease management programs. www.passporthealthplan.com Ronald McDonald House Charities of the Bluegrass 1300 Sports Center Drive, Lexington, Ky., 40502 (859) 268-0757 This charity exists to create and support programs that directly improve the health and well-being of children and to strengthen families by keeping them together in times of medical need. www.rmhclexington.com

2019 Exceptional Family KY

Resource List 2019 Shriners Hospitals for Children 110 Conn Terrace, Lexington, Ky., 40508 (859) 266-2101 Shriners Hospitals for Children has a mission to provide the highest quality care to children with orthopaedic or neuromusculoskeletal disorders and diseases within a compassionate, family-centered and collaborative care environment. www.shrinershospitalsforchildren.org/lexington SKY Pediatric Dentistry Dr. Mandy Ashley, DMD, MsEd, MS 234 Natchez Trace Ave., Bowling Green, Ky., 42103 (270) 715-5437 Dentistry for children and teens with special needs. www.skypediatricdentistry.com Square One Specialists in Child and Adolescent Development 6440 Dutchmans Parkway, Louisville, Ky., 40205 (502) 896-2606 / info@squareonemd.com Comprehensive medical, psychological, psychiatric, educational, and speech-language evaluations are offered to help understand differences that impact children’s and adolescents’ development, behaviors and emotions. www.squareonemd.com Robert A. Underwood, Ph.D. & Byron White, Psy.D: Edelson and Associates, PSC 7511 New La Grange Road, Louisville, Ky., 40222 (502) 423-1151 Neuropsychological, ADHD, Learning Disability, Autism and Psychological Disorder Evaluations. www.edelsonandassociates.info University of Louisville Norton Children’s Hospital 231 E. Chestnut St., Louisville, Ky., 40402 (502) 629-6000 Norton Children’s Hospital is a 253-bed teaching facility and serves as a referral center for central and western Kentucky and southern Indiana. The hospital is also the primary pediatric teaching hospital for the University of Louisville health sciences program. Each year there are approximately 8,000 admissions, 50,000 Emergency Department visits and 10,500 outpatient clinic visits. nortonchildrens.com/location/hospitals/nortonchildrens-hospital/ Verbal Behavior Consulting, Inc. PO Box 216, Lexington, Ky., 40588 (859) 899-9200 Established in 2007, VBC provides treatment solutions to families, schools and agencies regarding techniques and procedures guided by the science of Applied Behavior Analysis and Verbal Behavior literature. Providing services through Board Certified Behavior Analysts, VBC offers experience, training and expertise in working with children with language delays and problem behavior. www.vbcaba.com

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MENTAL HEALTH PROVIDERS 360 Mental Health Services 1517 Nicholasville Road, Suite 302, Lexington, Ky., 40515 (859) 948-9471 / tim@360mentalhealth.com Dr. Tim Houchin is one of only approximately 200 physicians triple-board certified in child/adolescent psychiatry, general psychiatry and forensic psychiatry. He believes in a holistic, 360-degree approach to evaluating and treating both children and adults. www.360mentalhealth.com Creative Psychiatry P.L.L.C. Dr. F. Allen Walker P.O. Box 23509, Louisville, Ky., 40223 (502) 384-ADHD (2343) / drwalker@louisvilleadhd.com www.louisvilleadhd.com The Kentucky Association of Regional Programs 152 West Zandale Drive, Suite 201, Lexington, Ky., 40503 / (859) 272-6700 A state association whose members are 11 of the 14 community mental health centers in Kentucky. KARP can connect citizens to their local community mental health center for information about services and support. www.sites.google.com/site/kentuckycmhcs Mental Health America (MHA) MHA is the nation’s leading community-based nonprofit dedicated to addressing the needs of those living with mental illness and to promoting the overall mental health of all Americans. The work is driven by a commitment to promote mental health as a critical part of overall wellness, including prevention services for all; early identification and intervention for those at risk; integrated care, services and supports for those who need it; with recovery as the goal. Regional Offices: Mental Health America of Kentucky 216 E. Reynolds Road, Suite F, Lexington, Ky., 40517 (859) 684-7778 / mhaky@kih.net / www.mhaky.org Mental Health America of Northern Kentucky & Southwest Ohio 912 Scott St., Covington, Ky., 41011 (877) 361-4518 / (859) 431-1077 / www.mhanky.org NAMI (National Alliance for the Mentally Ill) NAMI is the nation’s largest grassroots mental health organization dedicated to building better lives for the millions of Americans affected by mental illness www.nami.org Regional Offices: Kentucky (606) 677-4066 / (800) 257-5081 namiky@bellsouth.net / http://namiky.org/ Bowling Green Deborah Weed / (270) 796-2600 Wc2600@outlook.com Buffalo Trace Sharon Darnell / (606) 759-4010

Sharon@namibuffalotrace.org Dinah Adamson / (606) 782-3261 dinahadamson@gmail.com Cumberland River Joy Bachman / (606) 584-2716 joy.l.bachman@icloud.com Danville Tim Joyce / (859) 265-1590 ky40330@hotmail.com Green River Jeff Cox / namigreenriver@gmail.com (270) 619-2461 Hazard Tarah Caudill / (606) 439-6600 ext. 5129 Namihazard@yahoo.com Heartland Gary Barr / (502) 471-4064 gary.barr@ge.com Hopkinsville Eric Embry / (270) 886-2205 eembry@pennyroyalcenter.org Lexington Fareesh Kanga, Chair / (859) 229-7128 fareesh.kanga@gmail.com Phill Gunning, Executive Director / (859) 272-7891 pgunning@namilex.org Julie Caudill, Office / (859) 245-4442 julie@namilex.org Louisville Jean Henry / (502) 588-2008 jean.henry@namilouisville.org Madison County Myranda McClure / (859) 986-6301 myrandamcclure@sjhlex.org Madisonville Linda Pierce / (270) 836-3445 savedn82@gmail.com Larry Pierce / (270) 836-7087 savedn82@gmail.com Morehead Carol Mauriello / (606) 356-9194 camauriello@moreheadstate.edu Mountain Region Mary Prater / (606) 349-3115 mary.prater@mtcomp.org Murray Brenda Benson / (270) 748-6133 brenda.benson@murraystate.edu Northern Kentucky Christine Reasoner / (513) 205-4118 creasoner@naminky.org Owensboro Tom Ilsley / (270) 993-4236 tewntyone21@gmail.com Paducah Ella Emerson / (270) 556-4374 namipaducah@yahoo.com Somerset Lori Ollo / (270) 210-7852 lori3ollo@gmail.com Winchester Brenda Harrington / (859) 749-3702 bebe1@bellsouth.net New Vista (Formerly bluegrass.org)

Resource List 2019 1351 Newtown Pike, Lexington, Ky., 40511 (859) 253-1686 / (859) 272-7483 24-hour help line (800) 928-8000 New Vista celebrates more than 50 years of service to 17 Central Kentucky counties. The mission of the nonprofit organization is to help individuals and families live their best life. New Vista provides services for community members in the areas of intellectual and developmental disability, mental health and substance use. newvista.org

MISCELLANEOUS Alter UR Ego P.O. Box 56, Farmers, Ky., 40319 hello@alterurego.co Adaptable clothing for people in wheelchairs to be fashionable and functional. For kids, teens and plus sizes. www.alterurego.co NuMotion Bowling Green 1017 Shive Lane, Suite E, Bowling Green, Ky., 42103 (270) 904-4934 Lexington 973 Beasley St., Suite 110, Lexington, Ky., 40509 (859) 225-3624 Louisville 11380 Bluegrass Parkway, Jeffersontown, Ky., 40299 (502) 266-9061 With a strong local focus, NuMotion aims to be the most responsive and innovative complex wheelchair company with which to do business. www.numotion.com Superior Van & Mobility 1180 E. New Circle Road, Lexington, Ky., 40505 (859) 253-1832 1506 Lakeshore Court, Louisville, Ky., 40223 (502) 447-8267 Superior Van & Mobility provides mobility solutions for the consumer and commercial transportation industry. Member of the National Mobility Equipment Dealers Association and a participant in NMEDAs Quality Assurance Program, which is recognition reserved for the highest quality mobility dealers. www.superiorvan.com

SCHOOLS

Academy for Individual Excellence 3101 Bluebird Lane, Louisville, Ky., 40299 (502) 267-6187 / www.aiexcellence.com Child Development Center of the Bluegrass 290 Alumni Drive, Lexington, Ky., 40503 (859) 218-2322 Five-Star rated preschool for children with and without disabilities. Services provided include assessment,

evaluations, and speech, physical and occupational therapy. www.cdcbg.org Christian Academy of Louisville Providence School, 3110 Rock Creek Drive, Louisville, Ky., 40207 / (502) 244-3225 ext 1020 CAL serves children preschool through fifth grade with Down syndrome within an inclusive environment to promote language, social and spiritual goals. Students also receive small group instruction to address individual goals. Curriculum and structure are designed to promote spiritual, cognitive, adaptive, language, motor and selfhelp skills. A Family Service Plan/IFSP is written with each family specific to the needs of their child. This program works in relationship with Down Syndrome of Louisville. School is adding sixth grade in 2019-2020. www.caschools.us/down-syndrome-providence-school Creative Learning Center Woodland Early Learning Center 575 Woodland Ave., Lexington, Ky., 40508 (859) 255-3444 www.kindercare.com/our-centers/lexington/ky/301376 The dePaul School 1925 Duker Ave., Louisville, Ky., 40205 (502) 459-6131 www.depaulschool.org Growing Together Preschool, Inc. 599 Lima Drive, Lexington, Ky., 40511 (859) 255-4056 Has offered nurturing early child care and education services to children with and without disabilities and other special needs in an inclusive environment since 1982. Additional services include developmental screenings and assessment; physical, occupational and speech therapy; and behavior consultations. Teachers have experience working with children of varying abilities and advantages, and integrating recommended therapeutic practices into the classroom. GTP is accredited by the National Association for the Education of Young Children, rated 5 STARS through KY ALL STARS and offers a Kentucky Proud farm to preschool menu. / www.gtplex.org The Kidz Club Erlanger: 527 Watson Road, Erlanger, Ky., 41018 (859) 727-0700 Lexington: 2200 Regency Road, Lexington Ky., 40503 (859) 224-0799 Louisville: 7140 Preston Highway, Louisville, Ky., 40219 / (502) 368-9318 Louisville: 225 N. 25th St., Louisville, Ky., 40212 (502) 365-2426 The Kidz Club is a prescribed pediatric extended care facility that provides skilled nursing care for children who are medically fragile in a day care setting. Kidz Club children range from having highly complex medical conditions to kids that simply need to be monitored or have medication delivered. The Kidz Club provides educational enrichment, therapy follow-through, field trips and activities in a fun, social setting. Transportation can be provided. Medicaid and private insurance accepted.

There are no costs to the child or their family. www.thekidzclub.com KORE Academy Porter Memorial Church, 4300 Nicholasville Road, Lexington, Ky., 40515 / (859) 971-7129 School for children with learning differences for grades 3-12. / www.koreacademy.org The Langsford Center 9402 Towne Square Ave., Cincinnati, Ohio, 45242 (513) 531-7400 2520 Bardstown Road, Louisville, Ky., 40205 (502) 473-7000 2805 N. Hurstbourne Parkway, Louisville, Ky., 40223 (502) 245-1706 / www.langsfordcenter.com The Lexington Schoolâ&#x20AC;&#x2122;s The Learning Center 1050 Lane Allen Road, Lexington, Ky., 40504 (859) 278-0501 The Learning Center provides a unique and essential service to children with language-based differences by offering an alternative to traditional classrooms. By creating a teaching environment that eliminates the major obstacles to learning, students are able to close the gap between achievement and their potential. Teacher-student ratios of 1:4 allow for individualized instruction in the core areas of greatest need. In addition, low studentteacher ratios will be maintained in other subjects such as science, social studies, computer skills, specials and social skills. www.thelexingtonschool.org Meredith Dunn School 3023 Melbourne Ave., Louisville, Ky., 40220 (502) 456-5819 www.meredithdunnschool.org Pitt Academy 7515 Westport Road, Louisville, Ky., 40219 (502) 966-6979 www.pitt.com The Provisions School & Family Counseling Center 128 Dennis Drive, Lexington, Ky., 40503 (859) 396-0644 www.theprovision.org The Sphinx Academy 1591 Winchester Road, Suite 101 Lexington, Ky., 40505 / (859) 309-6372 New and innovative secondary school for grades 7-12. Combines Montessori, homeschooling and special education. / sphinxacademy.org Sproutlings Pediatric Day Care & Preschool Kosair Charities Center 3800 Tom Larimore Lane, Masonic Home, Ky., 40041 (502) 753-8222 Sproutlings is a dual-licensed program and has spaces for medically fragile children and children in traditional

2019 Exceptional Family KY

Resource List 2019 day care or preschool. Staffed by Registered Nurses, Certified Nursing Assistants, teachers and teacher aides, and caring for a wide variety of medical conditions. Medicaid and private insurance is accepted. www.SproutlingsDayCare.com Stewart Home School 4200 Lawrenceburg Road, Frankfort, Ky., 40601 (502) 227-4821 Discover a residential school that offers lifelong learning, a postsecondary experience, the opportunity to attain a GED, vocational training and countless social and recreational activities among friends from all around the world. www.stewarthome.com Summit Academy of Louisville 11508 Main St., Louisville, Ky., 40243 (502) 244-7090 www.summit-academy.org

SERVICE DOGS 4 Paws for Ability University of Kentucky UK4PAWS@gmail.com www.facebook.com/4PawsatUK 4pawsforability.org/ 4pawsforability.org/photo-galleries/campus-program/ university-of-kentucky/ Paws With Purpose P.O. Box 5458, Louisville, Ky., 40255 (502) 689-0804 / Info@PawsWithPurpose.org pawswithpurpose.org Wildcat Service Dogs University of Kentucky Emma Rhodes, emma.rhodes@uky.edu www.wildcatservicedogs.org

SERVICE PROVIDERS (COMMUNITY AND RESIDENTIAL) For a complete list of Service Providers licensed in Kentucky please see: www.dbhdid.ky.gov/ProviderDirectory/ProviderDirectory. aspx ALMOSTfamily/CAREtenders Kentucky Home Health Offices. Multiple locations. www.almostfamily.com BrightSpring Health Services 805 N. Whittington Pkwy, Louisville, Ky., 40222 (800) 866-0860 / (502) 394-2100

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Provider of comprehensive home and communitybased health services to complex populations in need of specialized care. www.brightspringhealth.com Cedar Lake 9505 Williamsburg Plaza, Suite 200, Louisville, Ky., 40222 / (502) 495-4946 Cedar Lake is committed to providing the highest quality of services to the people it supports. To demonstrate its commitment to the development of a compassionate and capable workforce, Cedar Lake has launched a career development program with ongoing educational opportunities to further sharpen people’s skills. In doing so, Cedar Lake employees develop a heightened sensitivity – or compassion – for the people they support and a clear understanding of how they can best support these individuals to live a life filled with abundant possibilities. www.cedarlake.org Commonwealth Case Management A Columbus Company 2333 Alexandria Drive, Lexington, Ky., 40504 (270) 572-1350 / www.columbusorg.com Provides case management for SCL, Michelle P. and Acquired Brain Injury Waivers statewide. Commonwealth is dedicated to empowering Individuals and families to realize their meaningful life goals. New Perceptions 1 Sperti Drive, Edgewood, Ky., 41017 (859) 344-9322 Non-profit organization has been dedicated to enriching lives of those with intellectual/developmental disabilities since 1952. / newperceptions.org New Vista Behavioral Healthcare 144 Richie Lane, Somerset, Ky., 42503 (606)425-4432 This non-profit organization is dedicated to assisting individuals achieve their full potential through personcentered, community and integrated services. Supports for Community Living provider offers day training programming, supported employment and residential supports within staffed residences as well as family home providers. www.newvista.org Pathways P.O. Box 790, Ashland, Ky., 41105 (800) 562-8909 Pathways assists in obtaining individual and family-determined supports for persons who have developmental disabilities or intellectual disabilities. Goals are to serve and enhance opportunities for making choices that promote inclusion as a valued citizen in all meaningful phases of community life. www.pathways-ky.org R.E.A.C.H of Louisville 501 Park Ave., Louisville, Ky., 40208 (502) 585-1911 REACH provides an exemplary SCL program with

support for individuals and families through highly qualified support staff, which includes psychologists, social workers, crisis support managers, recreational specialists and special educators. www.reachoflouisville.com Redwood 71 Orphanage Road, Ft. Mitchell, Ky., 41017 (859) 331-0880 A non-profit organization funded by United Way, Redwood guides children and adults with multiple and severe disabilities to achieve independence and reach their highest potential throughout their lives, by providing enriching educational, therapeutic and vocational services. www.redwoodnky.org STRIDE 150 Maryland Ave., Winchester, Ky., 40391 (859) 744-0370 STRIDE serves individuals who have a learning or developmental disability and are at least 16 years of age. Daily programming includes cooking classes, dances, Special Olympic activities, daily living skills classes and much more in an effort to improve the quality of life for the participants. All participants are expected to live up to their responsibilities at home, work and in the STRIDE program. Motto: “We have an obligation to expect the best out of our participants and try to help them to continue to improve their skills.” www.strideky.org Zoom Group 1904 Embassy Square Blvd., Louisville, Ky.,40299 (502) 581-0658 Zoom Group has been providing supports for individuals with disabilities for over 30 years. Zoom Group’s mission is to “EMPOWER, EDUCATE AND EMPLOY” people of all abilities. www.zoomgroup.org

SPEECH, LANGUAGE AND HEARING Heuser Hearing Institute 117 E. Kentucky St., Louisville, Ky., 40203 (502) 584-3573 Heuser Hearing Institute (HHI) is a multi-specialty nonprofit campus promoting the needs of children and adults with disorders of hearing and balance. The organization has served Louisville and many of the surrounding Kentucky and Indiana communities since 1948. www.thehearinginstitute.org Kentucky School for the Deaf 303 South Second St., Danville, Ky., 40422 (859) 239-7017 Ensures that children and youth who are deaf or hard of hearing have educational opportunities to develop their potential to become educated, life-long learners and

Resource List 2019 productive citizens. www.ksd.k12.ky.us Kentucky Commission on the Deaf and Hard of Hearing 632 Versailles Road, Frankfort, Ky., 40601 (502) 573-2604 (V/TTY) / (800) 372-2907 (V/TTY, in Kentucky only) / kcdhh@mail.state.ky.us www.kcdhh.ky.gov/ Kentucky Hands & Voices (888) 398-5030 Hands & Voices is a non-profit, parent-driven national organization dedicated to supporting families of children who are deaf or hard of hearing. The organization is non-biased about communication methodologies and believes that families can make the best choices for their child if they have access to good information and support. The group consists of parents of ASL signers, cued speech users, kids with cochlear implants and total communicators. www.kyhandsandvoices.org

Spina Bifida Association of Kentucky Kosair Charities 982 Eastern Parkway, Box 18 Louisville, Ky., 40217 (502) 637-7363 / sbak@sbak.org The Spina Bifida Association of Kentucky is a resource center for children, their families and adults affected by Spina Bifida. SBAK educates parents how to be the best advocate for their child, and helps children and adults overcome physical, cognitive and social challenges to become successful and independent. The mission is to promote the prevention of Spina Bifida and enhance the lives of all those affected. / www.sbak.org Shriners Hospital for Children 110 Conn Terrace, Lexington, Ky., 40508 (859) 268-5798 www.shrinershospitalsforchildren.org/lexington

VISION

Kentucky Speech-Language-Hearing Association 838 E. High St., Suite 263, Lexington, Ky., 40502 (800) 837-2446 / khsaoffice@khsa.info The mission is to enhance the provision of quality services to persons with communication disorders and their families. KSHA provides broad-based education opportunities, public awareness and policy development initiatives, and supports professionals in speech-language pathology and audiology by promoting the highest standards for service providers. www.ksha.info

Radio Eye 1733 Russell Cave Road, Lexington, Ky., 40505 (859) 422-6390 Radio Eye broadcasts the reading of current news, public service and general interest programming to listeners and others who are blind and print-disabled. Radio Eye, which serves Lexington, Louisville and parts of Eastern Kentucky, strives to produce high-quality programming designed to help the listening audience lead enriched, productive and independent lives. www.radioeye.org

Lexington Hearing and Speech Center 350 Henry Clay Blvd., Lexington, Ky., 40502 (859) 268-4545 Provides diagnostic, therapeutic and educational services for individuals with hearing, speech and language impairments. www.lhscky.org

Kentucky Office for the Blind 275 East Main Street, Mail Drop 2EK Frankfort, Ky., 40621 (800) 372-7172 The Kentucky Office for the Blind consolidated services in October 2018 with the Kentucky Office of Vocational Rehabilitation. The mission of the Kentucky Office of Vocational Rehabilitation/Blind Services Division is to provide opportunities for employment and independence to individuals with visual disabilities. The Division serves Kentuckians who are visually impaired or blind and assists individuals in obtaining and maintaining employment, economic self-sufficiency and independence with complete integration into society. The Blind Services Section provides statewide services to all 120 counties and has 10 field offices located throughout Kentucky in Ashland, Bowling Green, Covington, Elizabethtown, Lexington, Louisville, Owensboro, Paducah, Prestonsburg and Somerset. kcc.ky.gov/Office-for-the-Blind/Pages/default.aspx

St. Rita School for the Deaf 1720 Glendale Milford Road, Cincinnati, Ohio, 45215 (513) 771-7600 / www.srsdeaf.org

SPINA BIFIDA

Cardinal Hill Center for Outpatient Services 2050 Versailles Road, Lexington, Ky., 40504 (859) 367-7125 / www.cardinalhill.org Kids Center Pediatric Therapies 9810 Bluegrass Parkway, Louisville, Ky., 40299 (502) 584-9781 Since 1959, the Kids Center for Pediatric Therapies has been helping children with special needs. Each week the Center sees over 300 children facing challenges such as autism, Down syndrome, spina bifida and cerebral palsy. www.kidscenterky.org

Cincinnati Association for the Blind 2045 Gilbert Ave., Cincinnati, Ohio, 45202 (513) 221-8558 Cincinnati Association for the Blind and Visually Impaired (CABVI) is a private, non-profit organization offering comprehensive vision rehabilitation services for people of all ages who are blind or visually impaired. cincyblind.org/about/

Clovernook Center for the Blind/Visually Impaired in Cincinnati 7000 Hamilton Avenue, Cincinnati, Ohio 45231 (513) 522-3860 Clovernook has proudly served women, men and children for over 100 years. This rich history provides the backdrop for today’s progressive and caring campus-like environment where the Center remains dedicated to adults and youth who are blind or visually impaired. clovernook.org/ Family Eyecare Associates & Children’s Vision and Learning Center, Dr. Rick Graebe 105 Crossfield Drive, Versailles, Ky., 40383 (859) 879-3665 / (855) 686-2020 In addition to general optometric services, Family Eyecare offers unique programs such as Vision Therapy for children experiencing difficulty with reading and/ or underachievement at school. Children in these programs average more than a 3-year improvement in performance in 10 to 15 weeks. www.myfamilyvision.com Kentucky Office for the Blind 8412 Westport Road, Louisville, Ky., 40242 (502) 429-4460 / www.blind.ky.govhttps://kcc.ky.gov/ Office-for-the-Blind/Pages/default.aspx Kentucky School for the Blind Division of the Kentucky Department of Education Office of Special Instructional Services 1867 Frankfort Ave., Louisville, Ky., 40206 (502) 897-1583 A K-12 public school serving Kentucky students who are blind and visually impaired. The school offers a Short Course program (1-12 weeks) of specialized instruction available to students throughout the school year. Summer school programs are offered in June and July. www.ksb.k12.ky.us Office for the Blind 275 E. Main St., Frankfort, Ky., 40601 (800) 321-6668 / (502) 564-4754 kcc.ky.gov/Office-for-the-Blind/Pages/default.aspx Visually Impaired Preschool Service (VIPS) Greater Louisville 1906 Goldsmith Lane, Louisville, Ky., 40218 (502) 636-3207 / (888) 636-8477 Central Kentucky 350 Henry Clay Blvd., Lexington, Ky., 40502 (859) 276-0335 / (888-254-8477) The mission of Visually Impaired Preschool Services is to offer appropriate services to infants, toddlers and preschoolers who are visually impaired or blind and to their families; and to maximize each child’s development potential through direct services, advocacy and community education. VIPS staff includes certified teachers who specialize in early childhood education, visual impairment, O&M, and special education. Several staff members are also parents of visually impaired children. www.vips.org n

2019 Exceptional Family KY