Thank you, Jayne!

Jayne, Words cannot express our gratitude for your endless support and encouragement when we learned of Will's diagnosis of Fragile X. Your kindness, knowledge, and honestly your friendship carried us through until we learned how to navigate our new norm. I hope you truly understand how you impact so many families. We love you and thank God for you.

-Jonelle McKee

Thank you for welcoming me to your team and for your wealth of knowledge about the FX community -- individuals, families, and professionals -- and what they want and need from the foundation, and from each other. Your experience and compassion made my job easier to help your users. And, thank you for challenging me. I understand you'll be getting Ian set up for life as an adult, I wish you, Ian, and your entire family all the best in the world. Ian is lucky to have you as his mom.

-Dany Petraska

I helped hire Jayne 16 years ago after she had first helped the NFXF as a volunteer. I have never - EVER - worked with a more caring, conscientious, dedicated, insightful, articulate person. (Oh, and with a great sense of humor, by the way.) I consider her not just a valued colleague, but also a true friend. I will look forward to working with her - again - as a volunteer and will always remember that I am a better person from knowing her. Talk with you soon, Jayne Dixon Weber!

-Robby Miller

Dear Jayne,

Congratulations on your retirement! I'm excited for you to enter this new chapter of your life and all the opportunities it presents with hopefully, a lot more fun! I feel so fortunate to have worked with you for so many years. Not only were you a wonderful colleague, but also a great friend and I so appreciated the many times I was able to lean on you for your insightful support and kindness. The work of the NFXF, while tremendously rewarding, was also incredibly demanding and knowing I could count on you was so helpful. Thank you for always being there for me.

My fondest memory of you is when you delivered a keynote presentation. With tears in my eyes, I watched you deliver a very poignant and powerful story that resonated with the entire audience. I will never see a pink tutu again without thinking of you! Enjoy those grands and the many moments of joy they bring!

Lots of love, Linda

Dear Jayne,

When we say Fragile X is the best community you don't really want to join, it is because of the people who live in it and the people like you we are fortunate to know. For us, you have always proven to be that solid voice of reason whether it was for us personally, matters of the Fly With Me Fund or the best video of Ian that teaches future educators a great lesson. We cherish the friendship that was created and would like you to know there exists a level of respect for you that most people don't achieve in a lifetime. Please know you are truly appreciated and loved. Even today, as you shift your focus, doing what you need to do for your family, you continue to be that solid voice of reason. We admire you for the decisions you make though they may not always be easy.

With gratitude, love and friendship, Shari

& Brian

Dear Jayne,

I wanted to offer my heartfelt thanks for you many contributions to the "Fragile X World." I have always valued the wisdom you have shared from your own experience as a Mom, and from the countless other families you have touched over the years. I admire the calmness you radiate, and your ability to provide a balanced and realistic perspective on life with a fragile X family member. In addition, you have always been so warm and welcoming whenever we've met in person at a Fragile X Conference or meeting.

I wish you and your family all the best in this new chapter!

Warmly, Gail Spiridigliozzi

Jayne, you have done so much for the international FXS community and our local Colorado community over the years. I wish there was a stronger phrase than 'thank you' for the depth of gratitude I have for all you've done to further awareness, advocacy and education. I wish you well in your newly singular focus - your son's future!

-Majorie Smith

Jayne, You are such an amazing mom and advocate, and have provided so much support to so many of our Colorado families (and beyond) with honesty, optimism and humor. The foundation will miss you but so glad our relationship will continue. Go Buffs!

Love and appreciation, Nicole Tartaglia "Dr. T"

Jayne, THANK YOU so much for all you have done to help me to transition into my new role as Director of the Fragile X Clinic at Baylor/Texas Children's. You have been so helpful in so many ways! You will be missed!

-Holly Harris

While there are no words to properly acknowledge the amount of time, effort, sweat, and tears you have selflessly given into making the Foundation what it is today, I want to say Thank You. Thank you for providing us with knowledge, showing us how to advocate, and always taking the time to listen.

I frequently recount our time spent together in Washington D.C. for my very first Advocacy Day and getting completely snowed in. Having come all the way from the West Coast and having just met people on the FX journey I was intimidated, without my family, and across the country. You took me under your wing and invited me along for a visit to the new clinic opening in D.C. We spent the rest of the day together talking and you shared some of your most successful "tips and tricks", many of which we still implement today. What could have been stressful and overwhelming, you made enjoyable.

I am honored to have gotten the opportunity to work alongside you. I look forward to hearing about the amazing opportunities you find for Ian and hope to continue to learn from your experiences. Thank you Jayne - be proud of the amazing work you have done.

-Jennifer Barber

Jayne Dixon Weber is one of a kind. She has an uncanny ability to invite shared conversation as she sets the tone of warmth, trust, and genuineness, which is her signature in all interactions. Her blend of wit, curiosity, and compassion set her apart, and this is reflected in the meetings she runs, the surveys and dialogues she facilitates, and in the breadth and depth of the written materials she has authored or assisted in bringing to our community.

-Tracy Stackhouse

Thank you for everything and good luck in all of your future endeavors! (Insert heart here!)

-Judy Opper

Thank you, Jayne for all you have done for the foundation and for the families. Enjoy your new chapter of life.

Love, The Jahnke Family

Your ability to maintain your calm, cool and collected demeanor is an inspiration to so many.

Thank you for sharing your journey and your invaluable insights to those of us who are following the path behind you. Your impact on the community and me has been tremendous!

-Missy Zolecki

Jayne! Thank you for being such an amazing co-worker! You are a ray of sunshine and I will really miss working with you. I wish you the best in this next chapter of your life and I know you will continue to do great things. Much love, Amie

Jayne - thank you for your thoughtful care, support, and dedication to families impacted by Fragile X. You have made an incredible difference to so many parents and caregivers throughout their journey. I appreciate your wise perspective and I will miss working with you!

- Kristin Bogart

Hi Jayne, wow how to thank you? I know we haven't had contact in regular intervals but when I have needed to reach out you have been of assistance since Phil's diagnosis in 2010. Thirteen years! The NFXF has been a great resource and you've been very personable. At one of your talks about preparedness and safety in 2014 you gave me some good ideas. Afterwards, I took my son and niece and nephew to the local fire station for a tour a couple of times. The firemen learned a little about FX. Then in 2018 my son's school principal expressed safety concerns. She thought a wristband would help. Me being a LEO at the time thought that it would have the opposite effect and it would show potential conman who was vulnerable in our community or that they would abuse it and wear the wristbands to delay and confuse LEO responses. So to respect privacy and dignity as well, I spoke with the supervisor of our Dispatch center and we made a form which explained that people can "pack their record" by calling the dispatch center. That way if a first responder comes to their home or is interacting with them then Dispatch can tell the first responder all the information. For example a deaf person is in the North East bedroom, or John Doe can only follow one step instructions and can't tolerate bright lights etc. I did a speech to our local Disability Community center and talked to all the disabled adults' about Law Enforcement and answered their questions. I think that I was inspired by the speeches and help that I observed from you and the other NFXF staff. That's just one example of how you've helped us. There are others. So thank you very much for your patience, responses, and help over the years. Oh, and when you talk about Colorado you really inspire me to visit someday! It sounds beautiful.

-Wendy Geiger

Thank you for all the amazing support and education you have provided over the years to families who have a child with fragile X. Your impact on the field will be felt for even more years to come. Best of luck as you transition to a volunteer and support your son's independence.

-Melissa Raspa

Hi Jayne! Best wishes to you during this transition for your family. You were the first person I spoke to at NFXF when my son, Gael, was diagnosed in 2016 (we were living in Boston at the time). It was so helpful to talk with you at that time, even though I very clearly remember telling you I felt like our life was over. Things have changed a lot since our diagnosis day - we still have challenges, but Gael is doing so well and is a very different child now is so many ways. Thanks for all you've done for the FX Community over the years - it's a special place! Good luck, Jayne!

-Kelly,

Andres, Gael & Liam Centellas

Jayne--We first met years ago and it was one of the highlights of my Fragile X journey. Your kind smile and your encouraging words have meant the world to me. The motto together we are stronger is 100% accurate. See you around and know you always have a place to stay if you come to Virginia.

-Andrea Creighton

Dearest Jayne

This voyage has been an adventure that only navigated to where we are (in a good way!;) ) with your vigilance and guidance.

Thank you earnestly for all that you are.If all the world had a Jayne like you, a better place it would be.

Be well, George and Max Hinkal

Jayne, thank you for being a wonderful role model to my daughter Lisa Thomas and to myself. We appreciate your guidance throughout our Fragile X journey with Jack Thomas. You set a wonderful example for everyone and are always available when we need help. Thank you for everything!!!

-Marci Rosenberg

My mom and I met you and your daughter at our first NFXF conference in Miami in 2012. It was the first time either of us had connected with another family who had similar experiences to us. It was very powerful and moving, and the two of us will always remember with fondness and gratitude the supportive acceptance we felt from Jane and her daughter.

-Caroline DeVane

Dear Jayne, You have and will always be an inspiration to me and to the countless mothers who look up to you for taking up challenges and working on them. Your ever so positive attitude inspires me to never give up. Thank you for all that you do for the Fragile X community, cherish our meeting at the Fragile X conferences.

-Veena Naren

Dear Jayne,

You have helped me and my family so many times with our questions about different aspects of FX. You were always sensitive and timely in your responses, putting us in contact with experts and developing podcasts on different topics. Thank you!

We have also gotten to know you and your son personally through your sharing at the conferences. That personal touch has made us aware we are not alone on our journey.

We will miss you as a point of contact at the NF Foundation!

Take care and thank you for taking care of us!

In friendship, Peggy Flanigan and Family

When we started seeing your name, Jayne Dixon Weber, we realized very quickly what an amazing powerhouse you are and how grateful we and so many families with Fragile X were going to be for your arrival on the FXS scene. You have given us such a wealth of incredible information and practical strategies in so many areas such as education, daily living, transition to adulthood, premutation carrier issues, etc., that are so challenging for families. And you do this all with a lovely sense of humor that helps lighten the load (who will ever forget the precious pink tutu and the mosey?).

And as if this weren't enough, the kindness and compassion you show all of us are like a precious balm that helps make our journey in this FXS world as smooth as it can be.

We wish you a smooth journey as you advocate for Ian.

We wish we didn't have to see the end of your working with NFXF, but we are so grateful that you will continue to volunteer and we look forward to continuing with you on this journey.

With much love,

Anita and Rick Inz

My first and my last (ing) impressions of Jayne are diplomatic and kind. She is the cool head in a uncomfortable situation, kind word to everyone/anyone and a wealth of knowledge (or knew where to get it).

- Denise Devine

You were the first person I talked to when we received Audric's diagnosis in 2010. You were so gentle and understanding. You gave us hope but also validated our shock and sadness. You are such an amazing advocate for your son and all those with FXS and we wish you the very best in your new venture!

XOXO, Jen Newsome

Dear Jayne,

Thank you for all you have done to support the TX Children's Hosptal/Baylor College of Medicine Fragile X Clinic in Houston. I value all the advice you have given over the year's since our founding in March 2011 and even during our Summer/Fall 2010 planning phase. One of my fondest memories is when you were in Houston in Feb 2012 when we hosted a clinic consortium meeting. I continue to feel privileged that you and David Nelson came to clinic with me to encourage my patients and their parents.

My husband, Tom, and I will keep praying for you and your son to have happiness, good health, and success in your future endeavors.

-Sherry Sellers Vinson, MD, MEd

Jayne, you have inspired me for years! Your connection with families, to help them/us navigate the FX waters upon diagnosis, has been monumentally impactful. We love and appreciate you so very much.

-Jay, Anne and Alec Souder

Dear Jayne, there is no way to thank you for your incredible support over the years!Wishing you and your family the best!

XOXO, Ann DeAngelo

Hi Jayne, Thank you! I've just read your article on toilet training...please don't poo poo this article!! It was so great and has given me so much hope. My son is 12 now and not toilet trained for no. 2s. Good luck in your next adventure!

All the very best, Eleanor Slevin

Jayne, thank you for your dedication and contribution to the NFXF. You have blazed such a path that will aid many families on their journeys with Fragile X. I only got to know you briefly. Still, it was great seeing how you transformed from an Engineer to an Educational expert of Fragile X. You have shown me that I can take this journey with Fragile X and make it my own! I wish you and your family all the best!

-Jaleesa Holden

Jayne, it is hard to put into words how impactful you are! I hope you are proud of the incredible work you have done alongside the Fragile X community and the lasting impression you have made. The NFXF is certainly better because of you. I have sincerely appreciated the opportunity to work with you and learn from you. You are a force! I look forward to reading what you write next. Thank you, Jayne!

Take care and sending you my very best, Hilary Rosselot

You are SUPER. Thank you, Jayne!