MC Magazine - Summer 2023

STEP

FORWARD

Jay was an army corporal –but his biggest battle was with his mental health. Read how therapy became his ally.

22

3 WELCOME

4 WILL YOU BE MY FRIEND?

6 YOU’LL NEVER WALK ALONE

8 LIKE MINDS

10 I NEVER THOUGHT I COULD FEEL THIS GOOD

11 THE LISTENER

12 HEALING WOUNDS

15 ONE STEP FORWARD

OATS –THE NEW COOL

Oat chef Ben Molyneux-Chan tells why this humble grain is the ultimate convenience food

JUST GIVING RING OF CONFIDENCE

King Charles has called for us all to volunteer

– but Louise has been doing it in style for 20 years.

MC magazine team:

Managing Editor: Steve Murphy.

Editor: Jackie Rankin.

Contributors: Jo Henwood, Emma Wilson.

Editorial: Julie Crompton, Joanne Cunningham.

Photography: Joel Goodman, Freepik.com

Design: Jo Hadfield.

Debi is a carer – now she’s learning to care for herself.

16 I’M DOING WHAT I LOVE BEST

18 BEHIND THE POKER FACE

21 HELP ON TAP

You can contact us at: communications@merseycare.nhs.uk

MerseyCareNHSFoundationTrust

@Mersey_Care

@MerseyCareNHSFT

22 A GRAIN OF TRUTH

24 SEEDS OF HOPE

26 GET OUT AND ABOUT

28 THE BEST MEDICINE

29 SHE’S THERE FOR ME

30 THE SMILING VOLUNTEER

32 RIDING HIGH

34 THIS IS ME

The GDPR is the General Data Protection Regulation, a European-wide law, which governs how organisations can collect, use and transfer personal data. It came into force on 25 May 2018 alongside the new Data Protection Act 2018. As a Foundation Trust, Mersey Care has a statutory requirement to develop and maintain a membership and it is necessary for us to process our members’ personal data to perform this task. Our members are drawn from the public, people who use our services or care for people who use our services and staff. We request and securely hold data on our members, which they provide when joining our membership. The data we hold on our members enables us to show that we are representative of the community we provide services for, to keep members updated through our quarterly MC magazine via email or post and to invite all members to the Annual General meeting. We also engage with all members advising when the election for governors will be taking place, giving members the opportunity to nominate themselves to become a governor and to vote in elections for the council of governors. Should you no longer wish to be a member of Mersey Care please email membership@merseycare.nhs.uk with your details or call 0151 471 2303 asking that your details be removed.

MEMBERSHIP AND GENERAL DATA PROTECTION REGULATION

WELCOME

Summer somehow makes it easier to connect with the world. Nature is at its best, warm days and balmy nights are perfect for getting together with friends and family.

In this issue we talk to people who have connected with others in quite different ways.

Louise Lamkin discovered a love of volunteering at just ten years old. Now 35, her zest for life and beaming smile endears her to everyone she meets (page 30). Ex soldier Jay’s story is often harrowing yet uplifting and full of gratitude for the people who have helped him rebuild his life (page 12).

A diagnosis of dementia in younger years can shatter dreams. We hear about a group offering friendship and connecting people who might otherwise feel alone (page 8).

We talk to experts about a condition that even experts can’t explain – fibromyalgia. Sufferers often feel let down by health services. We hear how one service is changing lives by doing things differently (page 18).

They may have arrived as strangers, but we go walkabout with a group where strong friendships have been forged (page 6). Enjoy this issue, have a great summer. The MC Magazine Team.

Read how Anne is being supported for fibromyalgia.

In this issue we talk to people who have connected with others in quite different ways.

Friendships grow in groups like this.

Having a good friend enriches our life.

WILL YOU BE MY FRIEND?

Do you recall how easy it was as a child to make new friends? Yet as adults we often struggle.

Emma Wilson talks to an expert about why friends are so important – and how to find them.

Psychologist Zeshan Khawaja says friendships can enrich

It’s well known that a reliable support system can reduce stress and make life more satisfying. Spending time with friends releases endorphins in the brain that make us happy.

While much emphasis is focused on romantic relationships, friendship is just as important to our wellbeing.

Clinical psychologist and family therapist Dr Zeshan Khawaja (pictured) says positive friendships can make you feel good, stop you from becoming lonely –and even protect you against illness. “As we encounter things beyond our control, the one thing we can control is who our friends are. Having a good friend enriches our life. They keep us grounded and help us manage life’s problems. Equally, they are there to celebrate the positive times and our successes. They accept us for who we are, they’re interested in what we have to say and will listen without judgement.”

Yet friendship doesn’t always last, as we grow and change, so might our friendships.

“When you’re younger you’re still forming your identity. You want to have experiences and try new things; you’re more malleable and less afraid of rejection,” says Dr Khawaja. “Later in life when you feel more self assured, you know what you bring to a relationship and what you want back.”

However, overthinking what we want can make us question ourselves, which can affect our confidence to socialise, says Dr Khawaja.

A friendship is unlike any other connection, says Dr Khawaja. “Friends are not in our lives by blood relation; they are there because we have invested in that friendship, and we are ready to work to keep it.”

“Fear of rejection is a huge barrier to making friends,” he says. “You might question whether you’re getting it right, or have concerns you’re not fitting in. But often people aren’t looking to catch you out.”

He says the easiest way to make friends is to use natural opportunities that present themselves to forge a friendship – or to strengthen connections with people you already know.

“Helping others is a good way of making friends. I know of service users who have joined support groups and gone on to create their own social networks and form close relationships.”

MORE INFORMATION

u3a.org.uk: locally run interest groups that provide a wide range of opportunities to come together to learn for fun.

Meetup.com: community support group from hiking to reading.

Better.org.uk: social enterprise committed to delivering a better quality of fitness and leisure, libraries and performing arts facilities for everyone.

• With a little help from my friends – Friendships often come easier if you have a shared interest. Being a member of a social group offers a sense of belonging. u3a offers learning and development courses for older adults, giving you the opportunity to meet and make new friends who share the same interests or lifestyle

• You got a friend in me – Reach out to old acquaintances. Life

happens and you can lose contact with those you were once close to; friends will be there if you’re willing to work on them

• I’ll be there for you – Sometimes showing up is all it takes, setting aside time can strengthen and maintain friendships. Don’t be afraid to say ‘hello’ or push yourself out of your comfort zone. It’s also important to respect your friends’ boundaries and make time for them

FRIENDSHIP TIPS

• You’re my best friend – Be open minded to having new experiences and taking opportunities when they come along – friends can be found in the most unlikely of places.

Fear of rejection is a huge barrier to making friends.

Helping others is a good way of making friends.

YOU’LL

NEVER WALK ALONE

By Jackie Rankin

They say a stranger is just a friend you have not yet met. It is never truer than the Our Croxteth walking group for people of all ages. We went along to find out more.

It’s a mild Sunday morning. Paul Denny is at the gates of the historic Croxteth Hall Gardens, a few miles outside Liverpool city centre.

People arrive, say hello and begin chatting while they wait to begin their hour long walk around the park. The walk has spun friendships that even organiser Paul couldn’t have envisaged when he posted on a local online platform, Next Door (nextdoor.co.uk), inviting people to join him for a Sunday walk. Paul, a nurse, has volunteered for much of his life.

“I turned up that first Sunday wondering if anyone would come – but they did, and we’ve never missed a week yet. We don’t let rain stop us, we just dress for the weather and we always have a hot drink and a chat in the café afterwards.”

There’s no charge to take part and he does the background organising in his own time. Funding from ‘Our Croxteth’ community partnership has enabled Paul to buy medical equipment and items for social events.

Walker Carol (below left) arrives to hellos and hugs from a small group of women. Less than a year ago none of them had ever met. They’ve just been on holiday to Spain and are now planning a winter break.

Carol had struggled after her husband died. As she’s recounting her nervousness at turning up completely alone, fellow walker Jan shouts up, “You weren’t on your own long though were you?” Carol grins – the women have a clear bond. “I feel so much better since I’ve been doing the walks,” she says. And I’ve lost weight.”

NEIGHBOURS ARE DOING IT FOR THEMSELVES

The Croxteth walking group is part of the trailblazing Our Croxteth programme which aims to improve the health and resilience of communities by giving them control and support to develop ideas in their neighbourhood.

Local groups and residents were invited to pitch their good ideas for a share of £50,000 funding from Mersey Care, Merseyside Police, Liverpool City Council and Cobalt Housing. Successful bids were chosen by a panel that included a community working group.

Mersey Care’s Associate Director Strategic Partnerships Pat McGuinness said: “People

who live and work in this community know far better than us what they need. It’s been dynamic from the word go; it really is managed from the bottom up. The sense of pride and determination is palpable and powerful. They have our word that we’ll support them but they’re doing it for themselves.”

For more information contact Pat McGuinness: pat.mcguinness@merseycare.nhs.uk

As our group, including three newcomers, sets off at a moderate pace, Paul ensures there’s someone at the front, middle and rear, so nobody is left behind. Marshalls include two registered nurses. Chef, Ronnie (pictured) who acts as marshall on our walk, moved to Croxteth from South Liverpool, and is using the walk to get to know his new neighbourhood.

It’s like a flash dance as people join the chattering throng along leafy paths. An hour later they’re sitting under the arches of the café, drinking tea and sharing stories.

There’s a sense that everyone knows they’re among friends – even those who just a few hours ago were strangers.

The walk has spun friendships that even organiser Paul couldn’t have envisaged.

START WALKING

Walking for Health: Free short walks to encourage people to get active at their own pace. Walks range from 30 to 90 minutes. nhs.uk

Ramblers offers easy access walks suitable for people with mobility issues and those pushing wheelchairs and pushchairs, to ‘technical’, which may require scrambling and ropes. Your first three walks are free, afterwards there’s a membership charge with concessions. ramblers.org.uk

Richie the ranger: Easy guided walks in Merseyside led by former Liverpool park ranger Richie Baker cost £2.50 per person. Some are bookable, for most just turn up on the day. Contact: 07850 239411 or email: richietheranger@gmail.com

Download the monthly programme at

Left to right: Carol has improved her fitness; The walking group with Paul Denny; Chef Ronnie is getting to know his neighbourhood.

LIKE MINDS

By Jo Henwood

Phill brings his wife Pat a cup of coffee in bed each morning. Sometimes he takes a second cup, because he has forgotten he brought the first.

Phill first noticed things weren’t right when he was speaking publicly. “I was having to say: ‘Sorry lads, I can’t get that word’. I wasn’t on the ball.”

A design engineer, he first went to his GP in 2019. He failed a memory test ‘miserably’ and a scan showed he had Alzheimer’s, a form of dementia.

Community Mental Health Nurse Helen Smith has been supporting people living with Young Onset Dementia, or ‘working age dementia’, for almost 20 years.

“Younger people are more often diagnosed with frontal, temporal lobe dementia, which can lead to changes in personality and issues with speech,” says Helen.

“Family and work colleagues see changes and it can be confusing for them. I have known relationships break down because someone’s behaviour has changed so dramatically. We use the term ‘living with dementia’ and try to maintain as much normality as possible.”

For those still working, the financial implications can be huge. The team works with employers to make reasonable adjustments to people’s work patterns or roles.

Helen says peer support is vital. A monthly support group runs, with initial funding from Mersey Care’s charity. Phill is an active member of the group. The team’s assistant psychologist Tom Faulkner says the group is a safe place for people to discuss their situation.

“There is a stigma attached to dementia and people don’t always want to discuss their diagnosis with friends and wider family. At the support group people feel able to share experiences and learn from each other.”

The group offers advice, welcomes guest speakers, and provides support for carers.

A diagnosis of dementia is difficult at any time of life but if it comes while someone is young, the news can have a devastating effect on the person and their family.

We do things that bring back memories... and we talk about how we feel.

Activities include memory games, quizzes, and special events. Some members get involved in social research at Liverpool universities, which benefits both academics and service users.

Tom explains: “If a company is developing a product for people with dementia, it’s only when someone with lived experience tries it out that academics can get the real picture.”

The support group also provides a valuable space for people to think about and share with loved ones what they would like to happen in the future.

Helen Smith explains: “We can spend time with the person and their family talking about the type of help and support they might want, and where they might like to be cared for. Having this documented means everyone is clear what the person has asked for, which is so important later.”

WE TALK ABOUT HOW WE FEEL

Phill now takes medication to slow down the progression of the disease – and he gets involved in activities at North Sefton Young Onset Dementia Support Group.

“We do things you can connect to - talks, memory games, music – things that bring back memories. And we talk about how we feel.”

He is now retired and determined to keep going with hobbies. He swapped karate – he can’t remember the sequences – for Tai Chi – and will attempt a half triathlon in Southport later this year. He’s keeping his engineering skills honed by building a trike, following methodically written notes. Soon he’ll start helping daughter Emma with her new house.

His father lived with dementia, so Phill is aware of the prognosis although admits that he doesn’t know how it will affect him. He still loves cooking, but often forgets whether he’s added an ingredient.

“It (dementia) is always there, poking fun at you. But I’m not looking for sympathy. I live every moment as it comes.”

CHARITY BEGINS...

The Young Onset Dementia group is supported by the new Mersey Care charity, Mersey Cares. Senior fundraising manager Joanne Watson explains the charity’s role.

“It’s simply to help the Trust enhance services and fund items, activities and programmes usually outside the scope of the NHS. It’s for innovative ideas that staff and people in our communities tell us they’d like to develop for patients, carers and colleagues.

MORE INFORMATION

Young Onset Dementia is a diagnosis of dementia under the age of 65. It is relatively rare and there are few support groups focusing specifically on the condition.

More help is available from: Dementia UK Dementiauk.org

Admiral Nurse Dementia Helpline 0800 888 6678

Resources and information aimed specifically at younger people and the issues they may face.

Alzheimer’s Society Alzheimers.org.uk

Dementia Support helpline 0333 150 3456

There may also be a support group in your area.

Citizens Advice Bureau citizensadvice.org.uk

Watch a short film about what happens at an assessment at: merseycare.nhs.uk/our-services/ liverpool/dementia-services

“They feel strongly that people should know more about suicide prevention, so that’s a real focus. So is dedicated support for patients and carers to stay well. We’ll also fund ways to reduce pressure for NHS staff and volunteers with health or financial struggles.

“Everyone has a right to good health. We’ll play our part in making that happen.”

Donate at merseycares.org.uk Organise a fundraising event or take part in our challenges using our fundraising pack: charity@merseycare.nhs.uk

We do things you can connect to –talks, memory games, music – things that bring back memories.

Family and work colleagues see changes and it can be confusing for them.

I NEVER THOUGHT I COULD FEEL THIS GOOD

Debi Freeland’s life was hectic. She had a partner, family, pet dogs and a full time job to keep her busy.

In 2022 events took a downturn. Debi, then 58, split with her partner; her son and his girlfriend moved out, and she became a carer for a friend and an elderly uncle.

“My life spiralled out of control. There was suddenly just me and my dogs at home. Food stopped being a priority and I gained loads of weight. I’d ignored invitations from my GP for a health check and only went because my mum and aunt had died of heart failure, and I was worried I might have undetected problems.”

Debi was eventually paired up with Healthy Knowsley’s Wellbeing Coach Rebecca, who helped her set small targets. She regained control over her life, including losing more than four stones.

“Rebecca’s phone calls kept me going, we built up such a good relationship. What I loved most was how the conversation wouldn’t be about my weight loss, it was about how I was doing in myself. I’d offload and she’d listen. I never felt pressure, it was about me the person.”

She’s able to overcome setbacks. “One day things didn’t go well, and I ate the contents of my fridge,” says Debi. “In the past that would have been my cue to give up, but Rebecca had helped me to think of it as a hiccup.”

This year Debi reduced her working hours and devotes more time to her caring role. She took up an offer of a free gym membership – and she hula hoops.

“I’ve always loved the hula hoop, it’s so easy, I do it while I’m watching the soaps on telly!”

Spurred on by her newfound confidence, Debi has just completed a sky dive, raising £400 for the Alzheimer’s Society.

“I never thought at 59 I could look and feel this good”, she says. “The girl I used to be is gone – and she isn’t coming back.”

Debi’s confidence is sky high.

TOP TIPS

Here’s some tips to help you keep active and well.

ASK YOURSELF

‘How can I move more’?

THE LISTENER

Resolutions are hard to keep, no matter what time of year. Life gets in the way of good intentions and bumps in the road can set us back. A new approach taps into what’s important to a person and builds on the reasons why they want to improve their wellbeing.

Health coaching is based on the principle that solutions for change sit within us –that we’re the experts in our own lifestyle.

Susannah Green from Healthy Knowsley explains: “Lives are busy, people want to make changes, but they get stuck. Health coaching is listening to understand what it is that someone wants to change, looking at the barriers and solutions, then supporting them along their journey.”

When someone is referred, or refers themselves, a health coach will immediately begin to build a partnership with the person.

“We never say ‘You will. You must. You should’. It’s naive and insensitive to say to someone who’s working and looking after a family,‘ you only have to find 30 minutes a day to exercise.’ We want to empower them to find their own solutions that work for them.

“We’re holding a mirror up for that person to look within themselves, then we act as a sounding board, giving time and space to talk through options to get where they want to be.

“There’s usually a trigger, it maybe small but it’s important to them.

They may have had a health scare, they want to be able to run around with their grandchildren, or it could be that they’re going to a wedding and need to fit into their clothes. The reason doesn’t matter. If they can focus on why it’s important to them, and look at what’s getting in the way, we can help find solutions.

“We do lots of reflecting; you get time and space to talk things through. It helps to keep linking back to the reason you wanted to make the change, or decide if the focus has changed.

“It’s also acknowledging things you’ve not factored in, discovering the bumps in the road, celebrating what you’ve learned and working out how to remove those barriers.

“Our focus is on how the person feels. If someone lost weight we’d maybe say, ‘You look really pleased, what is it you’ve done?’ It’s their achievement. We just held up the mirror and showed them that it’s within them.”

• You can self refer to Healthy Knowsley if you are 18 or over, live in Knowsley or are registered with a Knowsley GP. Call: 0800 0731 202

Use a SMALLER PLATE or a bowl for meals

TAKE THE STAIRS not the lift

PARK AWAY from the supermarket entrance

CARRY A BASKET rather than push a trolley

Check ingredient lists for HIDDEN SUGARS or fats

TIDYING, GARDENING and cleaning all contribute to keeping active

HEALING THE WOUNDS

By Jackie Rankin

Army corporal Jay Wheeler witnessed horror in Afghanistan. But he was also scarred by the trauma of an abusive childhood. He tells how a therapist helped him heal.

As young boys Jay and his brother were systematically beaten by their mother.

“Our mum beat us daily, mostly on a whim,“ he recalls. “She’d make us brush a floor then search for specks of dust so she could hit us with the brush.”

Jay’s only happy memory is watching 80s American TV series The A Team. “It seemed to be about people doing good for others. I knew I wanted to do that” said the gentle 51 year old.

Over time the army became his family.

When he applied to join the army, his mum doubted his ability to stay the course and ignored invitations to watch his passing out parade.

Jay won Best Recruit award and over time the army became his family. “I was doing well, but everything I achieved was tainted. I needed her approval,” he recalls.

Rising through the ranks to corporal, he toured Kosovo and Iraq, training Iraqi soldiers to use British weaponry. Then came the war in Afghanistan.

“We spent a year training, but nothing could have prepared me for the scale of the killing. I lost a friend and brother in arms – he was 21. It wrecked my mind.”

Continued on page 14.

Continued from page 13.

Jay hit rock bottom. He tried to take his life several times, spent time in five different mental health hospitals and tried endless therapies. Nothing and no one could reach him.

In 2020 Jay was referred to Mersey Care’s innovative Step Forward service, a new approach to helping people avoid becoming permanently ingrained within the mental health system.

Psychologist Faith Brammer diagnosed complex Post Traumatic Stress Disorder and Emotional Instability Disorder. When she recommended trauma therapy, Jay was sceptical.

“I couldn’t see how it would help, apart from anything else it was on Zoom. But it worked, I connected, I felt someone was listening. Faith explained that what happened in my childhood was a big part of my problem. She took me to places in my heart I didn’t know existed and gave me ways to cope.”

He had his faith and the support of his family and friends. He had adopted a rescue bulldog and discovered a love of art as therapy. But he still struggled with what he had experienced and his past.

Jay still had unanswered questions about his mother. “I’d never had a chance to tell her how I felt. I wanted to go to her grave, but I knew I could only do it with Faith’s help. I asked that our next Zoom therapy session be at the graveside.”

Faith supported his decision and Jay travelled to Wolverhampton with his army support officer for the session.

“Faith stayed with me, talking and reassuring me. There were more sessions, but that was the point where I took back control of my feelings. It was a massive relief.”

Jay has his faith, his brothers and nephews, his art and now his work in schools talking about his experiences and encouraging others to talk about mental health.

He reflects with a smile. “I know my recovery starts and ends with me, but Faith made the difference.”

I connected, I felt someone was listening.

I took back control of my feelings.

What happened in my childhood was a big part of my problem.

Psychologist Faith Brammer supported Jay Wheeler through trauma therapy.

ONE STEP FORWARD

Previously, if someone struggled to engage, or didn’t meet the criteria for a particular service; or what was offered didn’t work for them, they risked falling down the ‘gap’ between services and ‘bouncing’’ around the mental health care system.

Operational Manager for Step Forward Liverpool Rachel Smith (right) said: “The situation was distressing, not only for patients but also for staff; there seemed to be a missing element.”

Step Forward aims to develop psychological therapies and services that fit around the person, rather than the other way round.

Consultant clinical psychologist Frank Chapman (below) explains: “Therapies need to be meaningful for the person. Some people may struggle to engage with talking therapy services.

“While they need extra support, they

might not meet the criteria for a particular service. Then there are some people in services who don’t need that level of support.

“Step Forward’s aspiration is to offer people a specific service that suits their needs. We want to try to intervene early to improve the outcome for these people, but also to reduce pressure on other parts of the mental health system, such as emergency care.”

the right ‘fit’, the person will be navigated directly in to an alternative.”

A priority has been to develop specific initiatives to support for people from minoritised backgrounds, who are traditionally less likely to seek help. Service users’ own experiences and ideas have played a key role in Step Forward’s development.

Rachel says demand has been high and feedback positive.

Using Mersey Care’s innovative thinking, and funding from NHS England’s Transformation Programme, the team has worked with other services and organisations, including the voluntary sector, to integrate Step Forward into the wider system.

“Our goal is for people to move between services more easily” says Frank. “If one service isn’t

People have told us how different their experience has been this time. Going into therapy can be scary; the first service isn’t always the one that meets their needs. We’re trying to learn what they need and shape a service around them.”

• Find more on Step Forward at: merseycare.nhs.uk

Step Forward is a new approach to helping people with mental health problems take steps in the direction they need to recover.

Therapies need to be meaningful for the person.

Rachel Smith.

Frank Chapman.

PUTTING CHILDREN FIRST

KATIE HARRIS, SCHOOL NURSE

I began my career as a nursery nurse, but nursing is in my family and my blood, so I trained and worked as a district nurse. I loved being in the community and the rapport you have with families; but this role fulfils both my passions –children and nursing.

The innocence of children’s minds makes me smile. Listening to their views, hearing their stories, finding out what they need from you, is a privilege.

They’re our next generation, it’s up to us to give them support systems that will help them become resilient. If I can be part of building a child’s confidence and help make them happier, that’s a reward in itself.

We work closely with our families, so we get to know them well. Watching a family in a crisis, hitting rock bottom and having safeguarding concerns, is hard to see. But helping them make the changes needed for their children to be safe and happy, then being able to pull back, knowing they don’t need our help anymore, is the best feeling.

Families can be wary when we step in, so it’s lovely when they say, ‘you were right, we needed help and we’re a better family for it’. I tell families no one is a perfect parent –I’m certainly not. We all need a bit of help sometimes.

I love it when children are genuinely excited to see us in school. I’m now applying to be a specialist public health nurse. I’ve come full circle and I’m staying.

FOR MORE INFORMATION

about school nurses visit: merseycare.nhs.uk then search School Nurses.

It’s up to us to give them support systems that will help them become resilient.

POKER

Showing her trademark courage and character Gaga has shared her story with the media, shedding light not only on her own challenges but also becoming a beacon of hope for others. She’s spoken candidly about her experiences, saying “Chronic pain is no laughing matter.”

Gaga has had to confront the unpredictability of her illness, sharing, her heartbreak at having to cancel shows because she was in so much pain.

Despite the toll on her physical and emotional wellbeing, Gaga’s unwavering spirit shines through.

She’s adopted a fitness routine (exercise has a role to play in managing symptoms) and has become a passionate advocate. Her Born This Way foundation, has spearheaded initiatives aimed at supporting research, providing resources and encouraging self care.

Her resolve and support for others perhaps summed up best by her rallying cry, “I’m just trying to change the world, one sequin at a time.”

Why we need to listen (page 20) and Anne’s story (page 21).

BEHIND THE POKER FACE

GAGA’S SPIRIT SHINES THROUGH

By Steve Murphy

The impact that Lady Gaga has made on the world of entertainment cannot be denied, but behind the acclaim, glamour and fame, lies a personal struggle with fibromyalgia; a pervasive condition, characterised by widespread pain, chronic fatigue, and cognitive impairment.

I’m just trying to change the world, one sequin at a time.

WHAT IS FIBROMYALGIA?

Fibromyalgia syndrome is a long term condition which causes widespread pain and tenderness over your body. It is thought to be caused by over sensitivity within your nervous system (brain and nerves) which results in increased pain messages to your body.

Fibromyalgia symptoms can vary, some days your symptoms may be better than others.

OTHER SYMPTOMS CAN INCLUDE:

• Poor sleep

• Poor concentration or mental processing – also known as “fibro fog”

WHY WE NEED TO LISTEN

Fibromyalgia is a long term condition that can cause widespread pain in the muscles, tendons and ligaments. It’s thought to affect one in 25 people.

Research abounds on what causes fibromyalgia, but no one really knows. The irony is that sufferers may be fine one day and in agony the next. It’s difficult to diagnose. Even experts struggle to make sense of the disease and services can fall short of what people need; they can feel abandoned.

Consultant physiotherapist Ruth Sephton leads an innovative service in St Helens, Merseyside.

“Because symptoms vary, people are often passed from one service to another, sometimes for years, without a diagnosis,” she says. “Even when they are diagnosed, all too often they’re discharged immediately and told to exercise.

“The person is far from that point, both mentally and physically. Exercise is important in managing fibromyalgia, but they need guidance and personalised care that considers what’s most important to them. We need to tackle other things that might make symptoms worse, like stress, financial difficulties and social isolation.”

Clinicians and patients have together designed a new fibromyalgia ‘pathway’ that looks at the whole person. Now, when someone is referred by their GP, they are diagnosed rapidly and the musculo skeletal team will work with them to develop a support programme. Dedicated fibromyalgia clinics have been set up to help the team learn more about the person.

Advanced Musculoskeletal Practitioner

Michelle Cunneely explains: “To help someone manage the condition we may refer to physiotherapy, psychology, or to pain services. But we’re also mindful that there may be wider issues that might be contributing to the problem.

“It may be that someone has been unable to work because of their symptoms and has financial problems. It could be that they’re feeling isolated. We would link with social prescribers and community services who can meet their specific need.

“There’s no magic pill to make this condition go away. But now we’re offering what people tell us may help them to live their best life. Most importantly, they feel someone is listening.”

• Muscle stiffness

• Sensitivity to light or touch

• Fatigue.

WHO GETS FIBROMYALGIA?

• It’s estimated that somewhere between 1.8 million and 2.9 million people in the UK have fibromyalgia

• It most commonly develops between the ages of 25 and 55, although children can also get it. It appears that more women are diagnosed with fibromyalgia than men.

WHAT CAN I DO ABOUT IT?

Your GP can talk to you about diagnosis and treatment. Getting enough sleep, exercise and a healthy diet will all help.

There’s a wealth of information at: merseycare.nhs.uk/fibromyalgia

Pain without cause is a pain we can’t trust. We assume it’s been chosen or fabricated.

Leslie Jamison

HELP ON TAP

Anne Millet loves tap dancing. But some weeks she can’t lift her feet.

Tiny but tenacious she battles against the pain that comes from living with fibromyalgia.

“I come from a generation where you just get on with it. But sometimes I feel like I’ve been unplugged. It makes me anxious, and I admit I have bursts of temper. It’s the frustration at not being able to do stuff. I fight it, but it wears me down.”

Initially she thought pain in her hands was related to arthritis she’d developed in her 30’s. Two decades later, after controlling her discomfort with medication, the strain on her body became unbearable.

“I was weary with how much it affected me; I slowed right down. It kept me awake at night, but the odd thing was how it wasn’t like that all the time. I’d have days where I could carry on at my usual 100 miles an hour.”

Her GP surprised her by suggesting referral to St Helen’s musculo skeletal team.

“I thought it was arthritis, but they put me on the fibromyalgia pathway.

“There’s lots of signposting to whatever you feel you need. There were sessions

about dealing with the pain, pacing yourself, and a medicine review. I enjoyed the gentle exercise class.

“I don’t sleep well, but the wellbeing course taught me coping strategies. I’m guilty of thinking it’s a sign of weakness if you don’t fight it. They’ve explained that it doesn’t matter if you have a day where you need to do a bit less.

It was good to talk to other people. Because sometimes I’m ok, people say, ‘are you sure you’ve got it?’ If you had a plaster cast, they wouldn’t question it. At the sessions you start to realise you’re not going mad, that other people are going through the same thing. It buoys you.

“I’ve had lots of support, but what helped me most was being listened to, that what I have was finally being recognised.”

You can find out more and order or download information leaflets on fibromyalgia from Versus Arthritis: versusarthritis.org

I was weary with how much it affected me; I slowed right down.

What helped me most was being listened to.

When it comes to oats, it appears many of us don’t know what we’re missing.

“The two things we want most from what we eat are taste and to feel free of guilt,” proclaims self confessed oats obsessive Ben Molyneux-Chan. “Oats give us both. They’ve become the go to food for the ‘free-from’ lifestylers – people who are demanding ‘free-from’ choices, but with the focus on the taste and quality of the product.”

The 30 year old wants us all to have a share of the spoils. He blogs about oats, has an almost encyclopaedic knowledge –and his dream would be to win the coveted Golden Spurtle World Porridge Making Championship in Carrbridge, Scotland.

“It sounds grand but I want to bring oats to the nation’s table by creating inventive, fun, and appealing recipes from a basic ingredient that has been around for centuries and has masses of scientifically proven health benefits. My recipes put taste first, but I’m committed to the principles of no artificial additives, colouring, or preservatives. They’re all gluten free and don’t contain refined sugars or animal products.”

A GRAIN OF TRUTH

If you think of oats as a bland gruel favoured by your nan, think again. Film maker and oat chef Ben Molyneux-Chan tells MC magazine why this humble grain is stealing the health food scene.

HOW COME OATS ARE SUDDENLY ON TREND?

“People are realising that oats are one of the most nutrient dense foods loaded with important vitamins for every aspect of health. They’ve learnt that the dry grain is highly absorbent so it can be infused with any strong flavour to make a tasty dish very easily. And lastly, but a big one, is weight loss – eat a bowl of oats and you soon feel full.”

ISN’T THE PREP A BIT OF A FAFF?

“Not really, in fact oats are the ultimate convenience food. Once you have the ingredients in your store cupboard. It takes 20 minutes to make a batch of the basic mix, which will keep in the fridge in a lidded container for four or five days. Add different extras each day – or let the kids do their own for a quick, stress free breakfast or snack.”

IS IT THE INSTAGRAM EFFECT?

Social media has played a part with chefs posting extravagant images of dishes, but oats have grown in popularity as people become more discerning and buy into new natural foods they know will benefit their health. A third of 16 to 24 year olds now only drink plant based milk products and that’s great for the oat mix.

WHEN DID YOU DISCOVER OATS?

I always knew that what I ate affected my mood and energy levels, but it was when I took up Mixed Martial Arts competitively. MMA is an intense sport that puts lots of stress on the body. I needed a cheap, nourishing food that enhanced my performance, and oats had it all. But it’s for everyone. Our bodies crave nutrients, lets give them what they need!

@benmolyneuxchan

The 2023 Golden Spurtle Award takes place on Saturday 7 October. Visit: goldenspurtle.com

CACAO ORANGE OVERNIGHT OATS

KNOW YOUR OATS... OAT GROATS – a grain kernel

STEEL CUT – groats sliced with a sharp metal blade ROLLED OATS – oat groats steamed and then rolled into flakes

METHOD

• Place your preferred serving dish on a set of electronic scales

• Add all the dry ingredients (oats, salt, cacao powder, raisins and chopped dates) to the dish, measuring each one to get the correct quantity

• Mix together (to prevent the cacao from becoming clumpy)

• Add the orange juice, oat milk and honey

• Stir until well combined

• Store in the fridge in a lidded container for at least 8 hours

• Sprinkle with orange zest and cacao nibs. Enjoy!

INGREDIENTS per single portion

50g rolled oats

Pinch of salt

½ tbsp cacao powder

15g raisins

15g chopped dates

50g orange juice

70g oat milk

10g honey

TOPPING

orange zest

cacao nibs

SEEDS OF HOPE

The sun is shining in the gardens of Walton Life Rooms. Tables are laden with seed trays, potted some weeks ago and now beginning to sprout tiny shoots.

ardening group members start to trickle in and take a place at the tables. Regulars chat to newcomers, welcoming them and putting them at ease. Group leader Simone Lister explains that the session will be devoted to ‘thinning’ shoots which are crowding their tiny pots, so they have room to grow and flourish before being planted in the ground.

GFor Collette, who cares alone for her disabled son, it was to help overcome depression after traumatic life events.

“Just getting on a bus was a challenge, but I’m glad I did, it’s saved my life. Outside people try to understand, but people here actually do, they’re the same as you.”

Vicki and Mark are at the session for the first time. Mark is clearly anxious, and Vicki reassures him. She has issues trusting people. “I struggle with loneliness but when I mix with people I panic. This is a safe place; the people here are gentle and when I’m outside and planting I forget about my problems for a while.”

The analogy is not lost on those listening to her instructions. Room to grow and space to breathe is, for many, the reason they’re here.

John, 56, is a regular. “I feel I blend in here, it’s a very soothing place. When you’re busy planting or weeding it takes your mind off things. When I see something I’ve planted growing, I think ‘happy days’.

By Jackie Rankin FOR MORE

INFORMATION

on how The Life Rooms can help you improve your wellbeing go to: liferooms.org

This is a safe place; the people here are gentle.

When you’re busy planting or weeding it takes your mind off things.

Green is scientifically proven to be the most calming and refreshing of colours? Looking at greenery is easy on the eyes. It invites harmony and can make you feel relaxed and optimistic.

ENTER THE CALM ZONE

REST YOUR EYES INTO THE WOODS

Yes, we know, the benefits of being outside are well and truly out there. But have you been out yourself this year and really put them to the test? If not now’s the time. Read our round up of things to try that will bring your mind and body into the calm zone.

OUR SURVEY SAID…

Nearly two thirds of UK adults say spending time gardening or in nature helps their mental health. Respondents to a 2022 survey by the mental health charity Mind said it makes them feel less stressed and that they benefit from taking in the sights, colours and smells of the outdoors. Looking after houseplants or growing food or plants in window boxes also boosted wellbeing.

Ever heard of forest bathing? There’s no water or swimming costumes involved. It’s no more complicated than simply going for a wander in your local woods or park, but with real focus on the natural world around you, from the rays of sunlight catching the leaves to birdsong echoing from the canopy.

FEELING CALMER OR LESS STRESSED

TAKING IN THE COLOURS, SOUNDS, SIGHTS SMELLS ETC.

Japanese studies showed that two hours of mindful exploration in a forest could reduce blood pressure, lower levels of the stress hormone cortisol, and improve concentration and memory. They also found that trees release chemicals called phytoncides, which have a protective antimicrobial effect on human bodies and thereby boost the immune system.

TIPS

• Pick a quieter time of day

• Turn off your electronic devices

• Take your time – you’ll see more.

EXERCISING OUTSIDE

63% 43% 26

nationaltrust.org.uk/discover/nature/trees-plants/ a-beginners-guide-to-forest-bathing

Walking barefoot in nature can help us reconnect with the ground. It’s known as ‘earthing’ and can decrease muscle tension and lower stress.

FOLLOW IN JOE’S FOOTSTEPS

You may want to take a leaf (in more ways than one) from internet sensation Joe Sugg’s book. His life was consumed by an endless stream of online content. When anxiety and burnout hit, the 26 year old turned to nature. His book Grow , reveals the creative and practical ways he is building it into his everyday life.

Joe’s hand drawn illustrations and personal stories go side by side with tips on how to find balance and harmony in a busy, technological world.

Grow is published by Penguin. Buy from bookshops or online, or ask at your local library.

THE BEST MEDICINE

For someone living with mental health issues, loneliness and isolation and a lack of hope can cause feelings of panic and hopelessness. They may turn to their mental health team or visit accident and emergency departments in a desperate bid for help.

But the best medicine often lies elsewhere. On Merseyside an army of experts from voluntary organisations has teamed up with health professionals caring for people with enduring mental health problems to offer more than medication.

Under this new scheme, the person may be matched up with a support worker, welcomed to social groups where they can meet new people, or take up activities such as angling, yoga, or dancing.

The aim is for people to have ongoing one to one support – someone to encourage, help them embark on new opportunities and be there in times of need.

The programme reflects national changes to bring ongoing care after diagnosis in line with the sort of care and support people receive for a physical health issue.

Rebecca Taylor is head of operations for the programme within Mersey Care.

She explains: “If someone went to their GP with a heart problem, they would be referred to a cardiac specialist team to be assessed, diagnosed and perhaps given medication or more investigations. But they would also receive ongoing diet and lifestyle support to help them stay as well as they can.

“We will always provide clinical care, but we can’t help people build personal relationships; to get back into their local community and become involved in social activities that will prevent them becoming more unwell in the future.

“Now, through this programme, we can instantly refer to experts in voluntary organisations who can give that continuous personal support that can help someone stay well and be there if they have a setback.”

“Someone with a mental health issue would be assessed, diagnosed, then be placed in the care of a community mental health team, perhaps with medication. But mental illness can cause people to become isolated from friends, family and their community. When someone is in crisis, they call their mental health team or go to their local A&E department.

Since the programme launched in 2022, success stories are plentiful, with people making friends, engaging in new activities and reducing medication. Some are now working towards complete discharge and others are considering volunteering within the groups they joined – another huge step forward in their recovery.

Rebecca says it’s made a big difference to both patients and health professionals. “It means people are getting the right type of help, and we can spend more time with those who most need clinical support.”

Read Paula’s story. Page 29.

We want to prevent people becoming more unwell in the future.

It’s having someone to encourage, help and be there in times of need.

People need the right type of support says Rebecca Taylor.

WANT TO KNOW MORE?

Mersey Care is working closely with the following voluntary organisations to support people with severe and enduring mental health problems who are in the care of their local community health team:

Age Concern Liverpool and Sefton

Tel: 0151 330 5678

ageconcernliverpoolandsefton.org.uk

One to one support for individuals by building personalised community programmes.

Evolving Mindset

Kirkby and South Liverpool

evolvingmindset.co.uk

Email: evolvingmindset@outlook.com

Connecting with people recently referred to their GP to help manage their mental health, reduce isolation and loneliness, develop skills and live independently.

Imagine Independence

Liverpool and Sefton 0151 709 2366

SHE’S THERE FOR ME

By Jo Henwood

Paula enjoys travelling and taking up new challenges. She recently went to London to pay her respects to the Queen and soaked up the atmosphere in Liverpool for the Eurovision Song Contest.

She also lives with anxiety and depression. In the past when she felt isolated, fear sometimes led to panic. Desperate to speak to someone and seeking reassurance, Paula would call the local crisis team or dial 999 for an ambulance or police assistance.

“I’d panic, I didn’t know what else to do” she says. “I felt that no one really understood what it felt like when I was very low.”

Through the programme Paula is now supported by Elaine Bartley from Sefton Council for Voluntary Services. The two now speak regularly, and Elaine offers moral support and motivation.

Paula has begun reading about mental health to better understand her condition. She’s on new medication and is contemplating talking therapies.

Testament to Elaine’s positive input is that Paula’s reablement team hasn’t needed to be involved in supporting her since she’s had the benefit of Elaine’s support.

Most of all Paula now feels she’s being listened to. “Elaine has seen me during my ups and my downs, she understands and motivates me,” she says poignantly.

“I look forward to speaking to her and if I have a problem, I know I can ring her –she’s there for me.“

Imagineindependence.org.uk

Supporting people with severe mental illness, with a history of lengthy admissions to psychiatric hospital to live better, more meaningful lives in the community.

Sean’s Place

Sefton seansplace.org.uk Tel: 0151 922 5444

Providing learning based opportunities to help manage mental health, reduce isolation and loneliness, develop skills and live independently in the community.

Sefton Council for Voluntary Service (CVS)

Sefton seftoncvs.org.uk

Southport office: 01704 517810

Waterloo office: 0151 920 0726

Providing trained support workers to work with people who regularly attend emergency departments to improve their independence and develop coping strategies to prevent further crises.

Liverpool Charity and Voluntary Services

Tel: 0151 227 5177

Email: info@lcvs.org.uk

Voluntary and Community Action (VCA)

Warrington, Halton, Knowsley and St Helens

Connecting with patients being discharged from Mersey Care inpatient and community services to support their transition.

THE SMILING VOLUNTEER

Volunteers are the country’s unsung heroes. They change lives and contribute £20 billion to the UK economy. Volunteering is good for you too – research shows it can make you happier and more optimistic. We talk to a volunteer who shares her love of life with everyone she meets.

You only have to walk down the corridors of Longmoor House integrated care unit in Aintree to see the effect Louise Lamkin has on those around her. Ward staff grin when they spot the bubbly 35 year old. They seem genuinely pleased to see her. Some ask, hopefully, if she’ll be on their ward.

Louise exudes joy. It could be because she’s doing what she loves. From an early age she would visit a local care home to chat and play games with residents.

Her passion for volunteering came when she was just ten years old.

“I was in hospital having an operation on my hip,” she recalls. “I remember meeting some volunteers, they were kind to me, they made me feel happy. I wanted to be like them – I thought ‘this is my dream’.

She’s since volunteered for major organisations including Alder Hey Children’s Hospital, Barnardo’s, and a Youth Hostel Association Hospice.

She’s now with Mersey Care, recently starting a placement at Longmoor House, after a spell as a meeter and greeter with The Life Rooms.

Each new placement means getting used to different surroundings, systems, and people. Louise is unfazed. “I get nervous, my tummy churns, but I’ve conquered my fears,” she smiles.

That smile did disappear back in 2020. Louise struggled with the isolation of the COVID lockdown. “It was horrible, I felt like my whole body was shutting down,” she recalls.

Her passion for volunteering came when she was just ten years old.

Now back on the job she’s upbeat and ready for work. With support from her mentor, she’s providing vital company for mainly older people who come to the integrated care service at Longmoor House, after they leave hospital before going home or into residential or nursing care.

Modern Matron Emma Evans says Louise is a huge asset to the team. She recalls only recently when a patient became unsettled while Louise was on the ward. “In that moment Louise recognised that the lady needed help and called a nurse. She’s made a big impact on all of us.” She glances over at Louise – they both smile.

GET IN TOUCH

If you would like to talk to someone about volunteering with Mersey Care, contact the Social Inclusion and Participation team. Email: volunteering@merseycare.nhs.uk

For a list of volunteer opportunities visit: gov.uk.

Matron Emma Evans (pictured) says, “Louise is a huge asset to Longmoor House. Patients who have been admitted from hospital for ongoing nursing, physiotherapy or other support, love it when she’s on the ward.”

I’ve spent most of my education ruling out what I didn’t want to do. I was never an Oxbridge candidate; at sixth form I did a dentistry placement, but knew it wasn’t for me. I studied, but I spent as much time practicing bass guitar for my band!

I was interested in nutrition and thought about physiotherapy, but I took my mum’s advice to keep it broad and did biological sciences at Lancaster. It made me realise lab coats and microscopes weren’t my thing – I needed to work with people.

I had friends who’d struggled with their mental health and was fascinated at how experience affects how we think. I researched careers in mental health, stumbled upon clinical psychology and enrolled on a Master’s course at Edge Hill University.

I needed practical experience, so I joined the NHS bank as a healthcare assistant and worked on wards in my free time. On one ward I watched as staff helped someone go from being very unwell to leaving the ward. I knew then I wanted to be a psychiatrist.

After a year preparing my application to the graduate medicine course at Liverpool University, it felt amazing to be offered a place.

I’ve just finished my psychiatry placement at Clock View; I was in awe of the way the consultant psychiatrist Dr Sumanth Kumar relates to patients.

Through it all I still make time for what I love, like weightlifting and triathlons. When you’re going to be doing a job for your entire life, I’ve learnt that it will take as long as it takes, don’t rush, enjoy life.

SPREAD YOUR WINGS

If you’re interested in finding out more about working for Mersey Care, visit: merseycare.nhs.uk/working-us

RIDING HIGH

Medical

and triathlete

THIS IS ME

ANN SAN Community Matron and

Staff Governor

I come from a long line of nurses and left a job in Littlewoods at 29 to follow in their footsteps.

One of my early jobs was in intensive care. I’d never seen a ventilator before and I thought, ‘what have I done’? However, it proved to be a fantastic career move; I went on to become a manager on a large surgical ward, managing both staff and clinical work. I loved it, but I missed working with patients.

I was one of the first community matrons back in 2005. We had close links with GPs and hospitals. It meant we could intervene early to help patients with chronic conditions manage their care at home. Two decades later I’m still as passionate and proud of this achievement.

WHY DID YOU BECOME A GOVERNOR?

I saw first hand the effect of the pandemic on colleagues. Experienced nurses were cracking under the strain, or leaving the profession due to the stress of looking after extremely sick patients. Nurses are there to reassure patients, but they too felt very vulnerable and scared.

As an experienced nurse I felt we needed a voice. Someone to question and be curious. I never shy away from awkward situations, and if I feel something isn’t right, I will always ask the question no matter how awkward it may be.

After I became a Governor, my daughter died after battling breast cancer for five

years. She was 41, a mum, a child protection social work manager and my best friend. Words can’t describe how much I miss her. The care my daughter received was exceptional. It’s always an honour to support patients and families and a privilege when they want you to be there. To then witness this care and treatment for my own daughter is something that will always stay with me.

I thought the experience might take away my passion and commitment as a nurse, but in fact it’s made me more determined to be a voice for nurses and my patients.

Annual General Meeting

Thursday 21 September 2023

1.30 to 3pm, Aintree Racecourse.

The Annual General Meeting is a great opportunity for you to find out more about our Trust, including our achievements and challenges, as well as our Annual Report and Accounts from last year. If you would like to join us please register your attendance by emailing: AGM2023@merseycare.nhs.uk

If I feel something isn’t right, I will always ask the question no matter how awkward it may be.

I am more determined to be a voice for nurses and my patients.