Round Table Meeting Report the Use of Generic Drugs in Thalassemia

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7. Do you report side effects (either from brand or generics) to your doctor? 75% answered positively 11.5% answered that that they do not report 13.5% did not respond 8. Do you know if the doctor reports side effects? • Yes 29 (30.2%) • No 54 (56.3%) • No response 13 (13.5%) Comment: Whether the doctor provides information is not statistically related to the level of patient education (p= 0.137) or the HDI of the country (p= 0.164). However there is a statistically significant relationship of doctor reporting side effects to the relevant authorities according to the HDI from which patients originated – Very high HDI believe that their doctor does report side effects (p= 0.004). This relationship does hold in the question whether patients report side effects. Questions related the patient / doctor relationship 1. How would you describe the quality of treatment from your doctor: • Very poor 2 (2%) • Poor 4 (4.2%) • Satisfactory 29 (30.2%) • Very good 23 (24%) • Excellent 25 (26%) • No response 13 (13.5%) Comment: This is a satisfactory result with very few exceptions. 2. • • • • • •

Patient relationship with the doctor Very poor 1 (1%) Poor 2 (2%) Satisfactory 25 (26%) Very good 28 (29.2%) Excellent 28 (29.2%) No response 12 (12.5%)

Comment: In all questions which relate to the relationship with doctors there is an abstention 12-15 % Questions related to the reimbursement policy 1. The reimbursement policy of the country • Patient pays completely out – of pocket 18 (18.7%) • Full reimbursement 9 (9.4%) • Some copayment necessary 48 (40%) • No response 21 (21.9%) The lack of response by 22% of patients is surprising. The countries of origin of these non-responders: Malta 1 UAE 1 Australia 2 Bulgaria 1 Mauritius 2 Pakistan 1 UK 1 USA 2 Italy 2 Afghanistan 1 Yemen 1 Greece 1 Argentina 1 Iran 4

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