HCI Magazine – Helix, Winter 2022

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HUNTSMAN CANCER INSTITUTE
2022 | Free Magazine Elfi and Rick Ortenburger’s many years of volunteering to raise funds for cancer research turn personal HEROES & HEART FURRY FRIENDS HOW THERAPY DOGS CAN HELP SUN SAFE IN THE SNOW Protect your skin this winter FOR FULL-BODY STRENGTH SIX EXERCISES
Fall/Winter

HUNTSMAN CANCER INSTITUTE’S MISSION

is to understand cancer from its beginnings, to use that knowledge in the creation and improvement of cancer treatments, to relieve the suffering of cancer patients, and to provide education about cancer risk, prevention, and care.

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The Race of Their Lives

Elfi and Rick Ortenburger’s passion for cancer research and running intertwine.

Winter Sun Safety

Utah has the highest melanoma rate in the country. Learn how to protect yourself year round.

Meet Our Therapy Dogs

These four-legged friends bring compassion and joy to cancer patients, their families, and staff.

Feels Like Home

Patient and Family Housing partners with the Little America to ease the burdens of travel.

The Area We Serve

Learn more about Huntsman Cancer Institute’s longstanding commitment to the Mountain West.

Helix shares helpful tips, hopeful stories, and notable happenings across our cancer hospital, research labs, and community clinics.

A DNA molecule is formed as two intertwined helixes. The helix helps tell the human story—it is a symbol of unity and discovery. The double helix is prominent in the Huntsman Cancer Institute logo and a meaningful emblem of our mission.

Published twice a year by Huntsman Cancer Institute at the University of Utah. Conceptualized, written, and created by the in-house Communications team.

Send feedback and ideas to allc@hci.utah.edu.

Meredith Vehar, MPA, creative director

Claire Davis, MS, lead designer

Drew Wiseman, writer and editor

Des Sandoval, MAPC, editor

Emily Bade, photographer

Matti McDaniel, MBA, program manager

Contributors: Josiane Dubois, Garrett Harding, Valkyrie Johnson, Amy Olsen, Efren Rodriguez, Heather Simonsen, and the Huntsman Cancer Foundation team

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Grieving the Loss of Your Health Six Moves for Whole-Body Strength Cancer-Fighting Foods Shopping List Carrot Ginger Soup Recipe 06 12 14 22 24 05 18 20 21
4 Social workers at Huntsman Cancer Institute help patients and their loved ones cope with emotions and changes that come with a cancer diagnosis. Confidential and free | 801-213-5699 | huntsmancancer.org/support • Stress management • Communication tips • Relationship and grief counseling • Help with depression or anxiety • Support groups • Financial aid resources • Community services • Advance directive assistance Patient & Family Support Services

Grieving the Loss of Your Health

Grief is a normal, healthy response to changes cancer can bring—to health, peace of mind, independence, and the ability to work or do things you love. It’s important to acknowledge grief and work through your feelings.

Talk with friends, family, social workers, or clergy. Consider joining a support group.

Ask for help from family members, friends, and neighbors when you need it.

Practice mindfulness or relaxation techniques.

Know it’s OK to grieve. Let yourself cry, feel numb, be angry, or feel however you are feeling.

Focus on what you can do instead of what you can’t do.

If you can’t do the things you love in the same way, think about how to make adjustments.

Save your energy for the things you value most.

Grief is different for every person. It may never go away completely, but the hurt will lessen over time. Even though you may not feel like the same person, you can define how you live your life going forward.

FOR MORE RESOURCES: huntsmancancer.org/support

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THE RACE OF THEIR LIVES

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As a soldier in the U.S. Army, Rick Ortenburger was stationed in Germany in 1969 at the height of the Vietnam War. “I was a personnel clerk and my buddy and I bought a Volkswagen bug for $200. One night, we decided to do something different and I wound up meeting Elfi.”

In February 1971, Rick and Elfi moved to the United States as a couple, settling in California.

“The Hughes program [the Hughes Aircraft Company, founded by Howard Hughes] had a contract with the government at the time,” Rick says. “If you were drafted, you were guaranteed a job when you came back. That was that. I worked for Hughes Aircraft for 37 years. I started by making crates and eventually became the manager of the Trident missile program.”

Elfi owned a gym until asked to be the running coach for the AIDS Project Los Angeles. She attended a training method course developed by Jeff Galloway, NCAA All-American and 1972 U.S. Olympic athlete. For four years, Elfi coached thousands of marathon runners using the Galloway run/walk method.

“In many ways, a race is analogous to life itself. Once it is over, it cannot be recreated. All that is left are impressions in the heart and in the mind.”

“We started with Walk the Talk, which was aimed at gathering money for AIDS research through walks and marathons,” Elfi says.

In 2004, citing a desire to spend more time outdoors and avoid California’s high cost of living, the Ortenburgers moved to Salt Lake City. CONTINUED ON NEXT PAGE

The couple met in 1969 and moved to California in 1971.
“A lifestyle change begins with a vision and a single step.”
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GALLOWAY American Olympian & Author

“We actually met Jon Huntsman at an event and he spoke about Howard Hughes,” Rick says. “Hughes had started his own medical institute and donated profits to medical research, and Jon was doing the same. He was an incredible guy who donated his money to finding a cure for cancer. It touched our lives and we thought, what an awesome cause to support.”

“I had retired and was looking for something to do,” Elfi says. “I saw an article in the Draper paper about a woman fundraising for Huntsman Cancer Institute. It read, ‘If you’re interested in helping, contact Lori.’

I contacted Lori Kun [development officer for Huntsman Cancer Foundation] and convinced her to start a weekly training program.”

That was the beginning of Huntsman Heroes and Elfi’s volunteer efforts quickly started to pay off.

“Seeing the donations—people helping any way they could—was an inspiration,” Elfi says. “We raised $37,000 the

first year and $350,000 the next. It’s amazing to see how many people are still with us almost 20 years later.”

Fundraising events for Huntsman Cancer Institute, then called Hometown Heroes and now called Huntsman Heroes, have expanded exponentially since the Ortenburgers first joined. They now include a virtual “choose your own adventure” option.

“We started with the Salt Lake Marathon and now we have events in Ogden and Park City. It’s not just for runners anymore. We have skiers, cyclists, walkers, and then it culminates with Huntsman SportsFest,” she says.

All funds raised—100%—go to support the mission of Huntsman Cancer

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The Ortenburgers with Rick’s training partner, Alicia Christensen
“Most runners hope running will always be a part of their lives. I’ll be happy if running and I can grow old together.”

Institute. To date, Huntsman Heroes have raised $5.59 million for cancer research at Huntsman Cancer Institute.

“The research provides hope for the future,” she says.

Elfi started running full marathons at the age of 45. In 2008, that all changed.

“I was coaching some runners during a track workout and the world started spinning. I went to the hospital, and I thought it was a stroke or something. I was diagnosed with vertigo.”

With vertigo making marathon running impossible, Elfi turned to climbing stairs to quell her fitness needs.

“I just like getting up and doing something for my body. I’ve changed from running to cycling. I’m making lemonade out of lemons. I like pushing myself.”

So, what about Rick? Does he share his wife’s passion?

“I started running in 1978, and I remember my first time. I went out on my 30th birthday because I was gaining weight. I didn’t have running shoes. People talk about a running high, and it’s true. You do gain more energy. I would wake up in the morning and beat the freeway rush to work. I would run at the gym before I went to work and that would carry me through the day. I found I was more positive, had more patience, and had more energy.”

Working with Huntsman Heroes allows them both to remain involved.

“When coaching, I try and keep them happy,” Elfi says. “I encourage people to do the best they can. I want to make them feel important, like anything is possible. We don’t push them out of their comfort zone. We don’t ask them to run harder or longer or up mountains.

I practice what I preach. I want people to see that I am working hard. I want them to see me making the effort.”

“Every time we race, we defy what our body says we should do. Our body screams at us to stop, yet we keep going. We endure and conquer every pain, every doubt that we have. If we apply that same mentality to life, we can overcome any obstacle.”

ON NEXT PAGE 9
CONTINUED

“Fast runner? Slow runner? Doesn’t matter. We pay the same attention to everyone,” adds Rick. “I would take pictures and then give them back to the runners to show them that they’re doing it. It helps them feel more important.”

Over the last few years, being a Huntsman Hero has taken on a deeper meaning for the Ortenburgers. In 2018, Rick was getting a haircut—a usual routine. But on that Monday, his longtime barber noticed something on Rick’s face. Within two hours, Rick was

seeing a dermatologist. The doctor told him it appeared an age spot had been scraped, but they’d take a sample just to be certain there was nothing else going on. By Friday, Rick was told he had melanoma.

“I’ve been a positive person through it all,” Rick says. “Choosing Huntsman Cancer Institute for my treatment was a no-brainer. The positivity of everyone in Clinic 2C makes me more positive. There’s only one way to go—forward. I can’t wallow in self-pity. I keep busy with my projects. You have to live your life, do what you love.”

“I’m the scared one,” Elfi says. “I feel anxious and sad. We don’t have any kids. He’s all I have. The people of Clinic 2C care about me as much as Rick. I have bad days. I used to not want to do anything. If not for them, I would have lost it already.”

Rick had lesions on his skin and suspect nodules in his stomach, spleen, lung, brain, and spine. He was treated with immunotherapy, receiving four infusions every three weeks as part of a clinical trial.

“He’s become my coach,” Elfi says. “He’s teaching me how to deal with reality, move forward and find the positives. He makes sure I’m OK, and I make sure he takes his medicine.”

The Ortenburgers have seen the deadly impact of cancer before. Elfi lost her dad and best friend to the disease before her sister also passed in 2021. Rick lost his mom to cancer as well.

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The Ortenburgers purchased and restored this 1967 Volkswagen after Rick’s diagnosis

“Winning has nothing to do with racing. Most days don’t have races anyway. Winning is about struggle and effort and optimism, and never, ever, ever giving up.”

“I keep a birthday card from my mom where she tells me ‘stay industrious,’” Rick says.

The Ortenburgers believe in their work and the Huntsman Heroes. “People say my dad did all these things for our town back in Germany,” Elfi says. “They say I’m just like him and that makes me proud. If I’m 10% of what he was, I’d be proud. I believe in this cause. I believe in giving back and I’m lucky I got to retire early and do that. I love coaching and helping people. These people are family. This gives me purpose.”

“I have a running buddy who lost their mother to adrenal cancer,” Rick says. “You have to think that with more research, they could have developed more successful treatments. Would she have been able to have more time with her family? We’re fundraising to allow people to live longer, and that’s why we keep doing it. Without the Huntsman Heroes, we are nothing. You see what Jon Huntsman did and you want to follow his lead. Everyone needs an inspiration.”

“That’s the thing about running: your greatest runs are rarely measured by success. They are moments in time when running allows you to see how wonderful your life is.”

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Rick, Elfi, and the Huntsman Heroes at the first practice of the 2022-2023 season
DID YOU FACTORS THAT INCREASE YOUR RISK UTAH HAS THE HIGHEST MELANOMA RATE IN THE COUNTRY. OUTDOOR LIFESTYLE FAIR SKIN HIGH ELEVATION Source: U.S. Department of Health and Human Services, Centers for Disease Control and Prevention and National Cancer Institute; www.cdc.gov/cancer/dataviz, released in June 2022 HUNTSMANCANCER.ORG/PREVENTION

HIGH ALTITUDE HIGH UV EXPOSURE

For every 1,000 feet above sea level, there’s 7% less ozone protection from the sun’s UV rays.

AT 10,000 FEET, YOU’RE 70% MORE EXPOSED TO UV RAYS.

That’s 150% MORE exposure to harmful UV rays than if you were at the beach.

YOU KNOW? PLUS
and reflects 80% of UV rays toward your face. snow acts like a mirror
HUNTSMANCANCER.ORG/PREVENTION
PRACTICE SUN SAFETY WEAR SPF 30+ SUNSCREEN on exposed areas of the skin. REAPPLY SUNSCREEN OFTEN.
UP. Wear long sleeves, long pants, a hat, and sunglasses or UV-reflective goggles.
=
COVER

MEET OUR

Animal therapy in hospitals—having trained dogs and their human partners visit—is proven to have positive effects on patients and health care staff. In an article on the subject, the Oncology Nursing Society reports, “Its use was even recommended by the founder of modern nursing, Florence Nightingale, who wrote about the benefits of animals in patient care and recovery: ‘A pet is often an excellent companion for the sick, for long chronic cases especially.’”

Ardi and Kingsley are some of the furry friends who visit Huntsman Cancer Institute. Learn more about them.

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Breed: Great Pyrenees Birthday: March 10, 2019

Partner: Cindy Therapy Dog Since: August 2020

Favorite Sport: Hiking in the mountains

Favorite Activity: Getting love from all he meets

Least Favorite Thing: Staying home without his humans

Breed: Golden Retriever

Birthday: July 28, 2020

Partner: Susan Therapy Dog Since: November 2021

Favorite Sports: Walking and hiking

Favorite Activity: Playing with other dogs

Least Favorite Thing: Staying home alone in his crate

Favorite Toy: Any stuffed animal he can chew up

OF

Increases communication
ANIMAL THERAPY Decreases stress and anxiety Helps with pain management
Reduces feelings of isolation, loneliness, and boredom Increases patient satisfaction Elevates mood
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Puppy love: Kingsley visits with staff and providers in the breast clinic workroom. Pictured here with Kirstyn Brownson, MD, surgical breast oncologist.
& Cancer TRAIN. FUNDRAISE. HELP ERADICATE CANCER .
following benefits: • Guaranteed entry into select events • Personalized coaching • Free team swag
. JOIN US. BE A HERO FOR HOPE! 17
Sleep
Huntsman Heroes share the same goal— eradicating cancer. They also enjoy the
Make an impact and support Huntsman Cancer Institute’s mission. Learn more or register at huntsmanheroes.com or email events@huntsmanfoundation.org

This exercise routine is designed to be quick and easy for almost everyone. If you are just starting to exercise, try one set first, then introduce a second set when ready.

If you’ve been exercising regularly, try two sets and adjust your number of reps so it becomes challenging. Best wishes and happy exercising!

Lay on your back with your knees bent. Cross one ankle over your other knee. Lift your hips off the floor into a bridge position and hold. Lower yourself back down. Repeat.

Begin in plank position holding a dumbbell in each hand. Pull one arm up, bending your elbow, then lower it back down. Repeat on other side.

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1 2
2–3x a week | 2–3 sets | 12–15 reps
2–3x a week | 2–3 sets | 12–15 reps

Participation in physical activity can include foreseeable and unforeseeable risks and other hazardous activities inherent in the program which may expose the participant to illness, injury, or death. Participants that have any medical conditions or concerns that would prevent participation in physical activity should contact their physician prior to engaging in activities. The University of Utah assumes no liability whatsoever for personal injuries or property damages to participant or to third persons arising out of participation in the program activities.

2–3x

| 2–3 sets

Begin standing upright. Step backward and lower your body toward the ground into a lunge position. Carefully return to the starting position. Repeat with the other leg.

Begin in a wide stance with your feet slightly turned out, holding a weight in front of your body with both hands. Lower into a squat position, then press back up to standing.

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4 5 6 3
a week
| 12–15
a week |
a week | 2–3
Begin in a staggered stance position holding both arms straight. Pull your arms down against the resistance, bending your elbows and bringing your hands to your shoulders. Slowly return to the starting position and repeat. | 12–15
reps 2–3x
2–3 sets | 12–15 reps 2–3x a week | 2–3 sets | 12–15 reps 2–3x
sets
reps
Begin on your back with resistance band looped under your upper back. Push your hands straight up toward the ceiling against the band. Return to the starting position and repeat.
The Personal Optimism with Exercise Recovery (POWER) fitness program provides a personalized exercise plan for cancer patients based on diagnosis, treatment type and phase, and fitness goals. Visit huntsmancancer.org/power.
Apples … Blueberries … Cherries … Cranberries … Grapefruits … Grapes … Oranges … Raspberries … Strawberries … Asparagus … Broccoli … Brussels Sprouts … Carrots … Cauliflower … Garlic … Kale … Spinach … Tomatoes … Winter Squash … Whole Grain Bread or Pasta … Brown Rice … Oats … Dry Beans (Kidney, Black) … Edamame … Lentils … Peas … Tofu … Flax Seed … Walnuts … Coffee … Tea The American Institute for Cancer Research reports that eating a variety of plant-based foods may lower risk for many cancers. Use this list next time you shop. • Fill half your cart with a variety of fruits and vegetables • Choose whole grains at least half the time • Enjoy fish twice per week • Choose low-fat or non-fat dairy products • Choose skinless poultry • Limit red and processed meat to 12-18 ounces a week • Limit sugary sodas and drinks Tip: Choose whole fruit Tip: Choose a colorful variety of vegetables Tip: Choose more plant-based protein Tip: Drink water most of the time

Carrot GingerSoup

Eating a diet full of plant-based foods such as fruits, whole grains, beans, and vegetables— including carrots!—may help lower risk for many cancers. Try this delicious carrot ginger soup with a slice of whole grain bread and a side salad for a warming winter meal, or serve it chilled for a refreshing spring option.

Serves 4-5

INGREDIENTS

1 1/4 pound

2 cups 1 cup 1 teaspoon

carrots, peeled and sliced chicken or vegetable stock water freshly ground ginger cream, divided 2/3 cup

Juice and finely grated zest of 2 oranges

Freshly ground black pepper

Chopped parsley (optional)

PREPARATION

Place carrots in a 2-quart stock pot, cover and cook until soft, about 10 minutes. Add stock, orange juice, zest, water, and ginger. Bring to a low boil for 6–8 minutes, stirring occasionally. Remove from heat and let cool slightly for 5 minutes. Blend mixture in blender or food processor until smooth. Stir in 1/3 cup cream. Add salt and pepper to taste. Ladle soup into bowls and drizzle with remaining cream. Garnish with parsley, if desired.

PER SERVING

Protein 2.5g Fiber 4g Carbs 13g Fat 12g 170
Calories
kcal
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ASalt Lake City classic, the Little America Hotel, is easing the burden of people with cancer through Patient and Family Housing. The affordable hospitality is a welcome comfort for John Reichert. In his 60s, John travels nearly six hours from his home in Whitehall, Montana, to receive radiation therapy at Huntsman Cancer Institute.

“The daily treatment really saps you of your energy,” says John, a married father of three who has eight grandchildren. “I’m tired all the time. But I have to pick myself up and put one foot in front of the other. Anytime you’re away from home, and you have people who are accommodating, that’s a comforting thing. The

hotel and Huntsman Cancer Institute staff go out of their way to make me comfortable.”

The Little America features spacious rooms and excellent amenities. It’s close to public transit and is a short drive to Huntsman Cancer Institute and University of Utah Hospital. This new partnership offers lodging for patients at a discounted rate. Guests have access to swimming pools, a fitness room, restaurants, and shuttle services.

Making a patient’s stay as enjoyable and restful as possible is key to their recovery, says Alyson Harding, MS, ML, director of support services at Huntsman Cancer Institute. “I don’t know if we can truly put into words the value of that.

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Patient and Family Housing at the Little America John Reichert at Patient and Family Housing at Little America

Caregivers can stay close to their loved one who’s in the hospital, who needs their love and support. It’s a place for the caregiver and the patient to get some rest, which is important.”

Harding says it’s also ideal for transplant patients who have been discharged from the hospital, but still need to stay close for treatments. “Both the patient and the family member are able to stay near us, rest, and recover. It’s an extension of the care Huntsman Cancer Institute doctors and nurses provide patients.

We hope they feel loved and supported in a tangible way through this special offering.”

Huntsman Cancer Institute rents a motel-like building at the hotel and runs it for patients and their families. On June 1, 2022, the first day

of the partnership, Huntsman Cancer Institute staff registered 60 patients, filling to capacity. According to Harding, patients and their families are thrilled with the accommodations.

The hotel and Huntsman Cancer Institute staff go out of their way to make me comfortable...It feels like home.

For John, who retired from the military in 2012, Patient and Family Housing gives him a comfortable place to recover. “It’s relaxing. It takes away the stress for a moment. It feels like home. I go to church every Sunday. The lodging is a big part of maintaining that routine, which can be important during treatment.”

Insurance or Medicaid may help cover the cost of lodging. Financial aid may also be available for guests who qualify.

• Shuttle service to and from University of Utah Hospital and Huntsman Cancer Institute

• Coffee maker, mini fridge, and microwave in room

• Free Wi-Fi

• Indoor and outdoor pools

• Fitness center

• On-site restaurants and lounge

• Room service (extra charge)

• Accessible rooms

• Free parking

• Close to public transportation, including TRAX and bus stops

• Start at $50 nightly, $300 weekly, and $1,075 monthly.

• Contact your insurance or Medicaid provider to see if they can help cover costs.

• Financial assistance available for guests who qualify. This applies to stays of one week or longer.

Call 801-521-4763 or email uuhclodging@utah.edu

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The Area We Serve

THE MOUNTAIN WEST

Working with partners, Huntsman Cancer Institute is committed to reducing the burden of cancer in Utah, Nevada, Idaho, Montana, and Wyoming.

169 counties, of which 158 are rural or frontier

Utah, Idaho, and Nevada ranked among top five fastest-growing states

Growing Hispanic/Latino and Native Hawaiian/Pacific Islander communities

Home to more than 40 American Indian Tribal Nations

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About Huntsman Cancer Institute

• Is the only National Cancer Institute-designated Comprehensive Cancer Center in the Mountain West

• Meets the highest standards in the world for cancer research and developing better approaches to prevent, diagnose, and treat cancer

LONGSTANDING COMMITMENT

Our expansive area of service builds upon decades of effort by Huntsman Cancer Institute and dedicated local providers and care teams at our affiliate hospitals. Together, we seek to make advancements in all these areas: • Cancer research and cutting-edge care • Prevention, screening, and education • Clinical trials access • Telemedicine

Collaborating across State
to Improve Cancer Rates and Outcomes We build
region,
• A
• Coalitions • Community organizations • Faith-based organizations • Health systems and clinics • Tribal Nations • Nonprofits • State and local health departments • Universities, colleges, and schools • Anyone interested in partnering ANNUAL CANCER CASES BY STATE* STATE NEW CASES DEATHS Idaho 10,440 3,240 Montana 7,030 2,160 Nevada 16,390 5,730 Utah 13,190 3,540 Wyoming 3,140 1,000 OUR
Helena,
Rock
AFFILIATE
HCI
Salt
South
CANCER BURDEN IN THE MOUNTAIN WEST* OVERALL INCIDENCE OVERALL MORTALITY Breast Colorectal Lung Melanoma Prostate Breast Colorectal Lung Pancreatic Prostate * Source: American Cancer Society, 2022 estimates; Centers for Disease Control and Prevention 25
Lines
trusting partnerships across the
united in a commitment to reduce suffering and find long-term solutions to improve cancer rates and outcomes. We work with the following:
community advisory board with members from each Mountain West state
NETWORK OF AFFILIATE HOSPITALS Rexburg, Idaho
Montana Carson City, Nevada Jackson, Wyoming
Springs, Wyoming Grand Junction, Colorado
HOSPITALS
LOCATIONS HUNTSMAN CANCER INSTITUTE
Lake City Sugar House
Jordan Farmington

DELIVERING A CANCER-FREE FRONTIER™ huntsmancancer.org

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