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A YEAR IN REVIEW

SHAPING THE FUTURE TOGETHER 2014-2015 ANNUAL REPORT


Hello friends, A picture is worth a thousand words and behind every face, there is a story. Inpatient units, treatment rooms, rehab gyms, research labs and boardrooms are filled with clinicians, scientists, clients and families working towards one goal – to improve the lives of children with disabilities and create a world of possibility. The faces you see in our 2014-2015 annual report are a snap shot of what we see in the halls and grounds of the hospital every day. They paint a picture of what really matters. It has been an incredible year for Holland Bloorview, filled with new beginnings and Canadian firsts. We are driven by a commitment and passion to put children and families first. We are incredibly proud of our new partnership with the Schwartz Center for Compassionate Healthcare, marking a Canadian first and joining over 475 international health centres to ensure all clients receive compassionate care. We have developed and launched one of the country’s most comprehensive e-health solutions – providing families with the information they need to manage their child’s health-care online. The Bloorview Research Institute has made incredible strides advancing a number of products and studies that directly lead to improving the lives of kids with disabilities. Our Teaching and Learning Institute continues to evolve, optimizing the student experience so they become world-class providers. As we embark on the third year of our strategic plan Leadership in Childhood Disability: 2012-2017 we are inspired by the progress we have made and how far we have come. Our strategic directions – Transform Care, Lead the System, Accelerate Knowledge, Inspire our People – have become a galvanizing force for everything we do. Our future is bright and we are confident the best is yet to come.

Julia Hanigsberg President and CEO

Janet Morrison Chair, Board of Trustees


LEADERS in CHILDHOOD disability working together

145 employees attended the first

CANADIAN SCHWARTZ CENTER ROUNDS®

110 employees enrolled in the research study evaluating the effect on promoting empathy

When people who have ‘possibility thinking’ come together and unify, incredible things can happen. Keith Adamson, PhD, Senior Director of Collaborative Practice on why he joined a world of possibility at Holland Bloorview

VOLUNTEERS

A GRADE OF

GAVE THEIR EXPERIENCE

828 VOLUNTEERS

215 Casual 430

Regular full-time

69

Temporary full-time

138

1381 109 EMPLOYEE

Temporary part-time

669

Generation Y (15 – 34 years-old)

46

Generation X (35 – 50 years-old)

94

Boomers (51 – 70 years-old)

19

Silent generation (70 – 93 years-old)

AWARDS

WERE GIVEN

VOLUNTEER

Regular part-time

72

SPOTLIGHT

47% 53% Volunteers

Employees

37

% OF OUR

WORKFORCE

ARE

EMPLOYEES

Building a culture of recognition AND

924

96.5%

GENERATION Y-ERS (BORN 1981-2000)

Holland Bloorview Foundation granted $7.3 million in funding: Research 23%

Client and Family Centred Care 22%

Research Institute Core Funding 20%

Community Resources 16%

Teaching and Learning 16%

Participation and Inclusion 3%


34

Senior clinician scientists

4

Clinician scientists

5

Senior scientists

6 Scientists

SCIENTISTS

16 Clinical investigators

16 full-time equivalents

124 TRAINEES

3

12 Post-doctoral fellows 27 PhD students

5.8

$

M

external funding

23 Master’s students (doctoral stream) 22 Undergraduate students 40 Clinical master’s/MD students

15.8% Donations 3.56% Federal 0.83% Industry 2.54% International 8.42% Canadian foundations, societies and associations 26% Provincial 0.16% Royalties 4.95% Scientists awards 11.01% Subgrant collaborations 21.18% Tricouncil grants 0.26% Other peer reviewed 5.27% Commercialization

Accelerating knowledge, transformational that powers innovative care

RESEARCH

57

Decoding autism to change the course of a child’s life

Research Ethics Board achieved

ALL GREEN

TORONTO ACADEMIC HEALTH

SCIENCE NETWORK

CERTIFICATION and FULLY COMPLIANT

CLINICAL TRIALS

ONTARIO CERTIFICATION

Canada Research Chairs 2014

Dr. Evdokia Anagnostou MD, Senior Clinician Scientist, Canada Research Chair (Tier II) in Translational Therapeutics in Autism Spectrum Disorder

CANADA’S

TWO NEW PhD, Senior Scientist, Canada Research Chair (Tier I) in Optimal Care for Children with Disabilities

ENDOWED CHAIRS: DR. MICHELLE KEIGHTLEY THE HOLLAND FAMILY CHAIR IN ACQUIRED BRAIN INJURY

DR. TOM CHAU THE CHANG FAMILY FOUNDATION

CHAIR IN ACCESS INNOVATIONS

TOP RESEARCH

40 HOSPITALS

2 1

LICENSED TECHNOLOGIES TO INDUSTRY ORGANIZATIONS

CREATED

Dr. Gillian King

HOSPITAL-UNIVERSITY

2014

42

Family leaders participated in the first of its kind Research Family Engagement Program bringing clients, families, youth and researchers together to improve care by grounding research in patient experience and priorities.

Participate in research

PUBLICATIONS

The Holland Bloorview

International experts at the Bloorview Research Institute are working to understand how a child’s genetic makeup affects brain development, function and behaviour with the goal of uncovering new ways to protect the brain from further risk and improve quality of life for children with autism and their families.

Helping families access studies that are relevant to them, the Bloorview Research Institute has developed a system-leading online directory. With just a few clicks, clients can find information on over a hundred studies taking place at Holland Bloorview.

PEER REVIEWED

NEW COMPANY COMMERCIALIZING

PROSTHETIC

KNEE JOINT


OUTPATIENT SERVICES

TO ACQUIRED BRAIN INJURY

AND THEIR FAMILIES

CREATING A

HEALTH RECORD IN

SUPPORTING ADOLESCENTS ADJUSTING

ELECTRONIC

WHO ARE

IMPLEMENTING AN

THERAPEUTIC CLOWN

PHONE LINE FOR CLIENTS TO SHARE THEIR FEELINGS

4

Leading the system, providing families can count on

CARE

most common inpatient diagnoses

6,981 CLIENTS SERVED

584

21.7%

54,835

27.5%

CEREBRAL PALSY (ALL TYPES)

INPATIENT ADMISSIONS

OUTPATIENT VISITS

ACQUIRED BRAIN INJURY

Building system capacity

12.1%

2

AUTISM

SPECTRUM

DISORDER COMMUNITY WORKSHOPS

CELEBRATED

by hosting CP-Net Science and Family Day with the Honourable Tracy MacCharles, Minister of Children and Youth Services

HOLLAND

to improve the quality of life for children living with chronic pain across the province

WORLD CP DAY BLOORVIEW & SICKKIDS

PARTNERED

GLOBAL DEVELOPMENTAL DELAY

25 paediatricians attended a workshop on early detection and 32 paediatricians attended a workshop on medical management

More children and youth suffering from chronic pain will now have faster access to the care they need through the Paediatric Chronic Pain Network. This integrated approach ensures that more children and their families will have all of their needs met – from physical to psychological and pharmacological – by their dedicated health care team. Dr. Eric Hoskins, Minister of Health and Long-Term Care

4.6%

ONCOLOGY

4 most common outpatient diagnoses ACQUIRED BRAIN INJURY AUTISM CEREBRAL PALSY GLOBAL DEVELOPMENTAL DELAY

World class centre in paediatric concussions The Concussion Centre at Holland Bloorview is a world leader in paediatric concussions, pioneering new protocols to retrain the brain and body so that kids can get back to doing what they love

Average length of stay (days)

47.9

overall

48.7 46.4 49.8 BRAIN INJURY REHABILITATION

COMPLEX CONTINUING CARE

SPECIALIZED ORTHOPEDIC AND DEVELOPMENT REHABILITATION


PARTNERSHIPS

ADVANCING CLIENT AND

FAMILY CENTRED CARE

SERVICES THROUGH PRO BONO

LAW ONTARIO

TM

98 938 2917 WORKSHOPS

PARTICIPANTS

35 86

SINCE 2013

e m il y r

THIS YEAR

ed ew

fa

vi

WITH FAMILY LEADERS

FREE LEGAL

490

SPOTLIGHT AWARDS GIVEN TO EMPLOYEES BY FAMILIES

DOCUMENTS REVIEWED

1:1 MENTORSHIP WERE HELD WITH

RECEIVED

CONSULTATIONS

FAMILIES

113

FAMILY RESOURCE CENTRE

Health literacy: Ensuring clients receive clear and easy to understand information

&

CONSULTATIONS

SUPPORT

25+

c li e n t

514

FAMILIES RECEIVED

CONSULTATIONS

IN OUR

870

CLIENTS & FAMILIES

ACCESSED

% 27 MORE BLOG VISITS

VISITS TO THE RONALD MCDONALD PLAYROOM

CLIENTS AND FAMILIES, CENTRE of everything we do

MANAGE

THEIR CARE

PROJECTS 56 SPECIAL AND COMMITTEES

1,835 AUTHENTIC 6,404 FAMILY LEADERS RATED THEIR

PARTNERSHIPS AS

THIS YEAR

88

%

FAMILY LEADERS VOLUNTEERED

HOURS

HELPS CLIENTS

FAMILY

LEADERS

FAMILY LEADERS PARTNERED ON

SINCE 2011

IN THE FIRST FOUR MONTHS.

157

HOURS

SIGNED UP FOR connect2care ONLINE TOOL

This was an exceptional learning opportunity and reflective process for my practice as a clinician. The experience gave a voice to the many families and clients that will cross my path along the way. Erin Brandon, Paediatric Nurse Practitioner

400

THE NEW

Ensuring the core principles of client and family centred care – respect and dignity, information sharing, partnership and quality of care – are embedded into everyday practice, all new clinicians at Holland Bloorview participate in simulation-based training. The first among industry peers to use simulations in this way, the hospital was recently recognized with a 20 Faces of Change Award from The Change Foundation.

CLIENTS

Empowering ensuring their voice is at the


583

STUDENTS

23

2014-2015

201 Clinical and other 212 Nursing 72 Medicine 79 Research 19 Bloorview School Authority

new simulation scenarios

2 Technology at the point of care 7 Client and family centred care 4 Effective listening skills 3 Solution-focused coaching 7 Communication skills

TEACHING tomorrow’s health-care leaders and LEARNING from each other “ Optimizing the student experience

86

%

OF STUDENTS

Rated the quality of the student experience as excellent or very good

The experience I’ve gained at Holland Bloorview goes far beyond a traditional social work placement – I feel well supported both from my team and the organization as a whole. Jennifer Iacocca, Student Masters of Social Work

International impact

Sharing our knowledge and training clinicians across the globe TORONTO MISSISSAUGA ORILLIA WHITBY LONDON OTTAWA GLASGOW PORTUGAL

EDMONTON CALGARY SEATTLE SASKATOON

CHINA

NEW BRUNSWICK MONTREAL

CALIFORNIA PALM SPRINGS IOWA MEXICO BELIZE

JAPAN

PITTSBURGH JAMAICA

THAILAND ISRAEL

CYPRUS

PERTH ADELAIDE NEW ZEALAND

Holland Bloorview trained developmental paediatricians

International trainees at Holland Bloorview 2014-2015

Families agree students: Listen and understand our needs

90%

International Teaching and Learning presentations delivered 2014-2015

Moving evidence into practice

Share information

Help us make choices

91%

83%

25

at Holland Bloorview % Experts have developed and launched

OF CHILDREN WITH

CEREBRAL

PALSY EXPERIENCE PAIN IN

EVERYDAY ACTIVITIES

a chronic pain toolbox to help clinicians accurately assess pain. The online toolbox is now available for all clinicians.

257 189

PAIN ASSESSMENTS COMPLETED AT HOLLAND BLOORVIEW INTERNATIONAL TOOLBOX DOWNLOADS


A TEACHING HOSPITAL FULLY AFFILIATED WITH

Holland Bloorview Kids Rehabilitation Hospital 150 Kilgour Road Toronto, ON M4G 1R8 T: 416-425-6220 F: 416-425-4531 E: info@hollandbloorview.ca­­ www.hollandbloorview.ca Follow us

Holland Bloorview Kids Rehabilitation Hospital (Holland Bloorview) is Canada’s largest children’s rehabilitation hospital focused on improving the lives of kids with disabilities. Holland Bloorview is a global leader in applied research, teaching and learning, and client and family centred care. We are a provincial resource transforming care for children with cerebral palsy, acquired brain injury including concussion, muscular dystrophy, amputation, epilepsy, spina bifida, arthritis, cleft-lip and palate, autism and other physical and developmental disabilities. Our vision is to create a world of possibility for kids with disability.


Holland Bloorview Kids Rehabilitation Hospital Annual Report 2014-2015