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A NEWSLETTER PUBLICATION/TWICE A YEAR Spring Summer 2022/2023 Newsletter Vol.29 No.1 NEWSLETTER STAFF Susan Houseman, President/CEO Ammy Seymour, Director of Development Richard Vanderputte-McPherson, Communications Specialist Sheila B. Warners and Flo Glass, Graphics
We are pleased to announce that after two years of creating meaningful ways to bring Camp Courage to children in their homes, we’re planning to hold it in person this summer!
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First, we offer you our gratitude. Finding a way to support grieving children in the midst of COVID, when we could not hold Camp Courage in person, was of great importance to us. When a child loses someone they love, often the adults they would go to for comfort are also grieving and can’t offer much help. Surrounded by sadness and silence, unable to find someone to listen to them or answer their questions, children can become fearful or angry, and their unresolved pain can surface for years.
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MUSKEGON, MI PERMIT NO. 231
1050 W. Western Ave., Suite 400 Muskegon, MI 49441 231.728.3442 – Muskegon 231.873.0359 – Oceana 231.845.5060 – Mason 616.844.3330 – Ottawa HarborHospiceMI.org
Circles of Care Spring Summer 2022/2023 Newsletter Vol.29 No.1
Four Decades
of Compassionate Patient Care by Susan Newhof
Can you imagine a world without hospice care? Many don’t have to imagine. They remember it clearly. The last time Roger Morgenstern saw his mother, she was in intensive care, hooked up to tubes and monitors, dying. It is an unforgettable image for Roger. He was 15 years old.
Your support of our improvised camp-athome programs, launched with the onset of COVID in 2020, made it possible for us to continue to reach out to children. Throughout the summer months, we sent them activity packages and age-appropriate books about loss, posted welcome videos, and hosted online conversations during which no child’s question went unanswered.
John Mulder’s father died of cancer in the early 1980s. “He suffered,” remembers John. “My family suffered. As a fledgling doctor, they looked to me to do something. I thought there must be a better way, but at the time, there was not.”
Look for the latest edition of Harbor Hospice Touching Lives magazine in your physician’s office. Within its cover, you will find national story, Biggest Lies We Tell Ourselves, as well as local articles Palliative and Hospice Care Give Deb and Rick Time to Love, Hope, and Live, and more. If you would like copies for your church, organization or business, please email or call us today.
Thankfully, changes would come soon. On November 1, 1983 a ruling provided Medicare coverage for hospice care for those who were terminally ill, and we moved into a new era of compassionate health care.
Calendar of 2022 Events Support of fundraising events helps us continue to provide hospice and palliative care to patients throughout our region regardless of insurance reimbursements or their ability to pay for care.
The children loved it and felt a sense of camaraderie with other campers, even though they met virtually. And our grief counselors were able to stay in touch with the children to see how they were doing.
We owe so much to visionary leaders who four years earlier formed a steering committee to explore hospice care opportunities in Muskegon County. Sue Wierengo did a feasibility study and made the case that this unfamiliar—and sometimes unappreciated—concept should not be aligned with another health organization but, instead, be presented as an entirely new way of caring for people at the end of their lives. With that as a goal, Hospice of Muskegon County, freestanding and volunteerbased, was incorporated in 1982. Sue became founding director, and the first patient was accepted in January 1983.
For more information or register for special events, please visit HarborHospiceMI.org. Please follow Facebook or Twitter @ HarborHospiceMI or our website for details. Questions about future events, or other educational opportunities? Please call us at 231.782.3442 / 1.800.497.9559 or email us at info@HarborHospiceMI.org to discuss.
The children will also take part in creative, healing activities to help them remember the person they love so much and to learn how they can grieve in healthy ways. Their experiences at Camp Courage will give them tools they can draw on years from now when they face other difficult situations. Because we have seen how lifechanging Camp Courage can be for a child, we charge only a $10 application fee, which we waive if needed. We don’t want the cost to stop any girl or boy from being able to attend. And that is why we reach out to you each spring and ask for support. Camp Courage will be held June 17 through 19. Our cost for three days and two nights of meals, lodging, staff and supplies is about $550 per child. Please consider making a gift to the Harbor Hospice Foundation on behalf of campers so we can continue to make this milestone experience available. Your donation of any amount is a compassionate investment in a child’s future.
The 41st Annual Fruitport Old Fashioned Days 5K will be held in conjunction with the 16th Annual Ride to Remember with proceeds benefiting the Leila & Cyrus Poppen Hospice Residence, a program of Harbor Hospice. Runners, joggers and walkers welcome for 5K! Race begins 8:30 AM. This is an out and back course that will take you through the rolling hills of Fruitport. Refreshments and awards ceremony to follow.
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children and doing traditional camp activities with them such as swimming, crafts, and making s’mores around the campfire.
Bike ride after running or bring your family for the leisurely bike ride around Spring Lake. Bike ride begins at 10:30 AM. Riders 16 age and under must be accompanied by a parent or guardian. Safety comes first, we encourage everyone to wear a helmet.
29th Annual Camp Courage— June 17-19
Camp Courage is a weekend overnight camp for children and teens ages 6–19 who are grieving the death of a loved one. Under the guidance of professional counselors and trained volunteers, campers enjoy traditional summer camp
Camp Courage 2022 will be held at Pioneer Trails on Big Blue Lake in Muskegon County. Applications are available online at HarborHospiceMI. org or by calling 231.728.3442 or 1.800.497.9559. Due to generous support from Harbor Hospice and our community, the only cost to attend camp is a $10 registration fee Application deadline is May 10, 2022.
Harbor Hospice Regatta and Awards — Wednesday, August 10
Celebrating its 15th year, West Michigan sailors love this race, and in the past 14 years have helped raise over $400,000 to support local hospice and palliative care. Regatta race open to sailors and held at the Muskegon Yacht Club. R E G A T T A
Community Remembrance — Monday, September 19 Join us at the 9th annual program encompassing beautiful music, readings, and bulb planting to help individuals and families in the communities we serve to both mourn the death and honor the life of a loved one. This program is open to anyone who has had a loss and need not have had hospice care. The annual Community Remembrance is held at the Heritage Memorial Garden located downtown Muskegon. Local community supporter, Pam Babbitt, developed the beautiful garden in honor of her late husband.
Horses for Harbor Hospice — Saturday, September 10
A unique and fun experience awaits you at the first Horses for Harbor Hospice hosted by one our very own nursing assistants. This memorable day will feature a day for equestrians, family and friends and feature trail riding, hayrides, silent auction, raffle, cornhole tournament, and more. Registration and sponsorship opportunities available soon—stay tuned!
OCTOBER
Join our team, sponsors, and volunteers for a run, jog, walk or ride in memory or honor of our loved ones. Register and crowdfund online for both events.
fun combined with grief support activities to address their losses. Camp Courage provides a safe environment for children and teens to express their thoughts and feelings, and to recognize that they are not alone in their grief.
AUGUST SEPT
Run and Ride to Remember — Saturday, May 28 or virtually May 21–28
JUNE
This summer, with COVID numbers decreasing, vaccines available for children, and health protocols in place, we are moving ahead with in-person sleepover camp! We look forward to gathering with the
Pictures taken by Melanie Dekkers, Photographer
PAID
A Celebration for the Harbor Hospice Foundation — Beanies, Brunch & Brews — Saturday, October 22
Transforming end-of-life care Mary Anne Gorman, a licensed social worker, was invited to serve on the first board of directors. In September 1984, she became the first on-staff social worker, a position Medicare required as part of an interdisciplinary hospice team that included a physician, registered nurse, chaplain and consulting pharmacist plus others involved in specific patient services. That team concept and the holistic offering of physical, social, psychological, and spiritual care became the hallmark of hospice care. John Mulder’s helpless feeling as he witnessed his father’s difficult passing left a deep impression. In 1984, as a new doctor in Muskegon, he accepted an invitation to join the board of Hospice of Muskegon County and later became medical director.
Telling the story
front of Hart shorn Centre
During the early years, much effort focused on educating the community about the role of hospice care and the broad support it could provide to terminally ill patients and their families. Still, recommendations to call in a hospice provider were often met with resistance. Asaline Scott’s husband, John, was the Muskegon County Health Department director and public health officer. After having surgeries and chemotherapy treatments for advanced colon cancer that had been mis-diagnosed for a year, doctors encouraged Asaline to arrange hospice care for John. “I said no,” recalls Asaline. “I thought you call hospice when you’re going to die. I am a believer and I believe in miracles. I was certain God would heal John.” John wanted to stop treatment and go home. But Asaline wanted him to remain in the hospital and continue treatment, and their seven children stood with her. John died in the hospital. “I just felt to bring him home meant certain death,” Asaline says, remembering that painful time. “Now I understand it’s not about us. When I talk with people who have a loved one who wants to be home at the end of life, I tell them to call Harbor Hospice. Patients need to be able to have a say in how they die.”
Expanding compassionate care opportunities Being cared for at home is not the best option for some patients, so in 2005, we opened the Leila & Cyrus Poppen Hospice Residence. This gracious facility located in Muskegon offers 14 private patient rooms and attentive around-the-clock care. Knowing that most patients would spend much of their time in bed, the residence was designed to offer peaceful views of gardens, patios, woodlands and walking paths from their pillows.
“I remember being impressed that hospice care was available, and sad that there had been nothing like it for my father,” he recalls. “There was such enthusiasm and optimism for how it would Mary Anne transform care.” Gorman und at , foregro Events tt o c S e f Asalin Event o
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embracing Jean Wiene 2009 Volun r teer of the Year
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The Muskegon Lakeshore will rock, again, in October 2022 when the Harbor Hospice Foundation presents Beanies, Brunch & Brews at Pigeon Hill Brewing Company’s new production facility in Muskegon. This memorable event will feature great food, outdoor games, bonfires, and tastings of Pigeon Hill’s notable craft beers, wine, and cocktails, all against a backdrop of lively music. VIP, general admission tickets, and sponsorship packages will be available summer 2022.
The issue we focus on with patients is not about dying. It is about how each person wants to live in the time they have. It is about exploring what is sacred, what is important to each of us. That is what we want to help each patient achieve. John Mulder, MD