DESCRIPTION BOOK:
In this refreshingly relatable memoir, David K. humanizes the experience of life with Duchenne muscular dystrophy. His many poignant recollections act as a prism, making the invisible visible, and demystifying the reality of having this neuromuscular disease. Among his many experiences:
• Being a “normal” college student: living away from home, staying in a dorm, learning independence, partying
• Confronting his early mortality at the age of 13, and being entirely unprepared to deal with it
• Kissing a girl for the first time at age 19, and realizing that women could indeed be interested in someone with a severe disability
• Learning he needed a ventilator the hard way: nearly suffocating when out with friends, and rushing home in a panic
David does not sugarcoat anything, nor does he spout a lot of empty inspirational rhetoric. All he does is peel back the curtain and show what it’s really like to live with a disability.