Focus Newsletter - Autumn 2019

Focus NEWSLETTER AUTUMN 2019

A YEAR OF COLLABORATION

Welcome to our Autumn newsletter. Whilst the weather may be getting cooler, things are certainly warming up at ERUK. Inside we have highlighted some of the activities we’ve undertaken to drive and enable more research into epilepsy: from continuing to fund pioneering lab-based and clinical research; to capacity building the research environment and accelerating innovations in health practice.

Collaboration and partnership have been at the heart of developments, with exciting and essential strategic relationships formed. Alongside our annual grant round, in July we launched the ERUK and Autistica Fellowship Award. This Fellowship – the first of its kind – is a direct response to learning from our 2019 International Expert Workshop on Epilepsy and Neurodevelopmental Disorders and will enable a future research leader to address the causes, prevention or clinical management of epilepsy in autistic people.

Other initiatives include plans to work with Young Epilepsy to develop our

paediatric epilepsy research strategy, a multi-centre international collaboration around Big Data, and promising discussions with other medical research charity partners to investigate commonalities.

This is just the beginning of a step change in our strategy to achieve more for people with epilepsy from both a scientific and health practice perspective and is guided by a steadfast sense of purpose and commitment from our Board and staff team.

A life free from epilepsy is possible.

Together we can achieve this through research.

Dr Richard Burman - Winner of the 2019 Céline Newman Basic Science Award At this year’s ILAE conference 5 early career researchers competed for the Céline Newman Basic Science prize.

This year’s winner was Dr Richard Burman who is originally from South Africa but currently at the University of Oxford. Dr Burman has been using basic science techniques to explore status epilepticus. Whilst the research is bench based, it will provide direct insight into how this life-threatening condition can be managed in the clinic.

Our thanks to the Newman family for their generous support of this prize.

INSIDE THIS ISSUE: 4

Grant holder news bringing you up to date

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Introducing the ILAE and what it means to ERUK

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Torie Robinson - What research means to me

10

Nine ultra marathon star Chris Dunn-Veale

LIFE CHANGING LIFE SAVING RESEARCH epilepsyresearch.org.uk

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I can hardly believe a year has passed since I joined Epilepsy Research UK as CEO. As a team, we are pleased we have been able to achieve so much in such a short space of time.

It has been inspiring to meet with the clinicians and scientists we fund and to understand more about the very real possibilities arising from advances in research into epilepsy. As ever, we are mindful of the need to ensure our portfolio of research is balanced so that we are providing both help for today and hope for tomorrow.

By far the greatest insight I have gathered this year has been from people whose lives have been impacted by epilepsy. It is a great privilege to witness the euphoria of people discussing being seizure free because of research-driven diagnostics and treatments. Equally it is difficult, and often distressing, to listen to the stories from the families who have lost a loved one as a result of epilepsy. I don’t mind admitting, I have come away from many a meeting and shed a quiet tear on the way home.

It is these very personal accounts that drive our collective sense of purpose.

Thank you for sharing them, thank you for supporting us and thank you for being part of this powerful community working together to achieve a life free from epilepsy.

Maxine Smeaton ERUK CEO

JOINT FUNDING INITIATIVES

Jon Spiers Autistica CEO

Finding new ways to detect and treat epilepsies in some of our nation’s most vulnerable citizens could not be more important. We also urge other research funders to seize the opportunity to include more autistic people in epilepsy research and, ultimately to save lives.

At the end of July, Autistica and Epilepsy Research UK announced a unique collaboration to improve epilepsy treatment for autistic people.

Around 600,000 people in the UK are living with a diagnosis of epilepsy and up to 40% of them are also autistic; that’s 240,000 people. Autistic people are also more likely to have epilepsies which are resistant to standard treatments. This means that, epilepsy is one of the leading causes of early death for autistic people.

This has recently been brought starkly to the public’s attention with a number of high-profile deaths of autistic people in NHS care which have been the direct result of poorly treated epilepsy. Yet people on the autism spectrum have been systematically excluded from epilepsy research for decades so very little is understood about why epilepsies are so common in this group and how autistic people’s seizures should be treated.

Following Autistica’s 2016 ‘Personal Tragedies, Public Crisis’ report which highlighted the severe impacts on quality of life and the shocking rates of early death in autistic people, they hosted a global summit on autism and epilepsy.

This was followed in early 2019 by Epilepsy Research UK’s International Expert Workshop on Epilepsy and Neurodevelopmental Disorders which brought together world leading experts and partner organisations, including Autistica. These meetings presented the latest research and seeded new research ideas and collaborations.

Building on the momentum of both these events and recognising the crucial need for focussed research into epilepsy in autism, Epilepsy Research UK and Autistica have combined forces to announce a Joint Fellowship which invites high quality applications to address the causes, prevention or clinical management of epilepsy in autistic people.

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COLLABORATIVE ENTERPRISES At the end of May, Epilepsy Research UK joined forces with other comorbidity charities to form the ‘Embracing Complexity Coalition’. The coalition has agreed to work together to improve the outcomes for people with neurodevelopmental conditions.

The charities have aligned due to the growing recognition that neurodevelopmental conditions often share symptoms and most people affected have more than one of these conditions, and often many. All the charities believe that a more integrated approach is required to help the many thousands of people affected. Forming a coalition is the first step.

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leading global experts

The Embracing Complexity Coalition released a report summarising the results of a survey of people living with neurodevelopmental conditions to help stimulate discussion and debate.

Epilepsy Research UK has long identified this as a priority research area, so in March of this year, the focus of our 12th International Expert Workshop in Oxford was Epilepsy and Neurodevelopmental Disorders Research where we brought together 50 of the world’s leading experts in epilepsy for a two day workshop. Our International Expert Workshops first began in 1993, and since then have been a recurring biennial event.

When welcoming the delegates to the workshop, Professor Bruno Frenguelli, Chair of ERUK’s Scientific Advisory Committee said, “The birth of a child is a momentous and joyous occasion in the lives of the parents. However, for all too many parents, this joy is curtailed by the realisation that their child may have a life changing underlying condition. This earth-shattering revelation often first manifests itself as the appearance of epileptic seizures, for which, unfortunately, there are limited treatment options. The Workshop is thus an opportunity for the expert community to consider the basis of neurodevelopmental epilepsy, to discuss the most appropriate models and diagnostic approaches, and to explore the potential treatment options for afflicted children.”

The workshop comprised six sessions, each exploring a different aspect of epilepsy and neurodevelopmental disorders. The session themes ranged from epileptic encephalopathy, genetic epilepsies, behaviour and development, to molecular therapeutic strategies.

Each session was followed by a chaired discussion to help identify and prioritise future research directions and forge collaborations.

We are looking forward to being an active member of the coalition and will be calling for further investment into this vital area of work.

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GRANT HOLDER NEWS We are delighted to share news from a selection of our grant award holders and demonstrate how ERUK’s initial funding has led to further investment in research into epilepsy. Our analysis over the last 5 years has shown that our funded researchers have leveraged an additional £5.16 for every £1 that ERUK has invested.

ERUK Fellow, Dr Gabriele Lignani, is investigating the potential of gene therapy as a treatment for acquired hard-to-treat epilepsy. Earlier this year Dr Lignani was awarded funding from the prestigious Medical Research Council. The New Investigator Research Grant, worth nearly £700,000 will be used to investigate the potential use of gene therapy in Dravet syndrome.

Dr Gabriele Lignani

Dravet syndrome is a severe and extremely rare but catastrophic neurological disorder affecting young children (approximately 1 in 19,000 people). Every day three or four children are diagnosed with Dravet syndrome worldwide, with symptoms including epilepsy, autism, movement disorders, and sleep disturbances. To date, the majority of therapies are ineffective or poorly tolerated and some medications can even exacerbate the problems.

The importance of the initial ERUK funding cannot be over emphasised.

As Dr Lignani says,

“ This MRC New Investigator Research Grant was only possible due to my ERUK Fellowship Award. Support from Epilepsy Research UK has enabled me not only to apply for this grant, but to collaborate with a team in Italy to learn about key advanced molecular genetic techniques that can be implemented in our lab at the Institute of Neurology. This further research grant is recognition of the high standard of ERUK-funded research.”

A massive ‘well done’ from us all at ERUK, to Dr Lignani.

£1

£5.16

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Dr Sukhvir Wright

ERUK Fellow Dr Sukhvir Wright at Aston University has been awarded a Wellcome Clinical Research Career Development Fellowship worth over £1million. This funding is to continue Dr Wright’s ERUK-funded research into autoimmunity and epilepsy. Dr Wright said, “Having witnessed first-hand, as a doctor, the suffering and devastation caused by autoimmune and intractable epilepsy I feel it would be an enormous privilege to make treatment discoveries that could transform these lives”.

Research award worth

£1m

An autoimmune disease is one in which the immune system, which normally protects our body from attack, begins to turn on the body’s own healthy cells and tissues. This causes the production of autoantibodies that target our own cells.

Dr Wright’s research “will find out why these brain autoantibodies cause epilepsy and seizures, and develop treatments that work to reverse the damage caused.”

We extend our thanks to Dr Wright for her huge contribution to this area of epilepsy research.

Dr Gashirai Mbizvo has been working with Dr Susan Duncan on an ERUK project grant to investigate the causes of death of people with epilepsy in Scotland over a five year period.

Dr Gashirai Mbizvo

This retrospective study, based at the Western General Hospital in Edinburgh and the Muir Maxwell Epilepsy Centre, has identified risk factors for epilepsyrelated deaths. Highlighting these risk factors, and identifying those that could be modified or even prevented, may lead to changes in epilepsy care and hopefully, fewer epilepsy-related deaths in the future. In May this year Dr Mbizvo was awarded the 2019 Charles Symonds Prize for Best Platform Presentation by a Junior Neurologist at the Association of British Neurologists’ Annual Meeting in Edinburgh. The Association of British Neurologists is the membership body for neurologists in the UK, and aims to promote excellent standards of care and champion high-quality education and world-class research in neurology.

This is not the first national award Dr Mbizvo has won for this project – he has previously won awards at the 2018 International League Against Epilepsy (ILAE) British Conference, and at the 2017 Scottish Association of Neurological Sciences Conference. In March this year Dr Duncan and Dr Mbizvo also visited the Scottish Parliament to speak about their important work.

Huge congratulations Dr Mbizvo, Dr Duncan, and the rest of the research team, from all of us at Epilepsy Research UK.

A life free from epilepsy is possible. The only way we can achieve this is through research.

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WHAT IS THE INTERNATIONAL LEAGUE AGAINST EPILEPSY?

Epilepsy Research UK is a member of the ILAE but what exactly does this organisation do?

The International League Against Epilepsy (ILAE) is the world’s pre-eminent association of doctors, health professionals and scientists working in the field of epilepsy. It has a world-wide membership, organised regionally with over 100 national chapters in all continents of the world.

WHEN WAS IT FOUNDED?

The ILAE has been around for over 100 years, having been in existence since 1909 and the British branch was one of the founding members. It has held meetings since 1913 and is one of only two national ILAE branches that have been in continual existence since the origins of the League.

IS THE ILAE JUST FOR UK CLINICIANS AND SCIENTISTS?

The ILAE works globally to ensure that health professionals, professionals, patients, care providers, governments and the public world-wide have the educational and research resources that are essential to understanding, diagnosing and treating people with epilepsy.

WHAT ARE THE ILAE’S OBJECTIVES?

The goals of the ILAE are three-fold: • To advance and disseminate knowledge about epilepsy • To promote research, education and training • To improve services and care for patients, especially by prevention, diagnosis and treatment

HOW IS EPILEPSY RESEARCH UK INVOLVED?

Epilepsy Research UK runs the Neurobiology of Epilepsy Session at the conference where we hear from five short-listed early career researchers who compete for the Céline Newman Basic Science Award.

The Award has been generously sponsored by the Newman family in memory of their daughter.

As members, contributors and participants we have a stand at the Annual Scientific Meeting which this year was held in Birmingham on 2nd–4th October. This gives us the opportunity to raise awareness about our grant programme and encourage researchers to make an application.

At this year’s event we were excited to see nine researchers presenting work that has been funded by our incredible supporters. Presentations were given by our Fellowship researchers, our Project and Pilot grant awardees and covered all areas of epilepsy research from improving diagnostic procedures, understanding the pathogenesis of seizures, treatments for epilepsy and predictive techniques to gauge memory outcomes in children after surgery or the likely success of medication in the control of seizures.

Do please keep an eye on our website: epilepsyresearch.org.uk to read a summary of the event’s proceedings.

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WHAT RESEARCH MEANS TO ME: TORIE ROBINSON, MEMBER OF ERUK SCIENTIFIC ADVISORY COMMITTEE AND CEO OF EPILEPSY SPARKS Research into epilepsy gives me hope: that in the foreseeable future we will have such an improved understanding of the human brain that we will be able to provide more effective and even preventative treatments for the condition that is epilepsy.

I hope for improved antiepileptic drug treatments for us which would lead to better controlled seizures with fewer side effects. I hope that surgery may become an option for more people.

But the way to turn things around, I believe, is to look at things from the scientific perspective. Look at the research that is being done; it is truly exciting.

Research funded by ERUK is enabling us to identify not just correlations but causations of abnormal and dysfunctional neural activity. It’s providing data enabling us to more effectively predict and prevent seizures. The more research enables us to understand our abnormal neural activity, the closer we come, little by little, to developing treatments that save lives and improve lives.

I feel humbled by the incredible

research ERUK is funding and excited for the future. Treatments and preventative measures will improve over time. Research is changing our lives.

Research into epilepsy gives me hope that we will be able to provide more effective and even preventative treatments.

A LIFE FREE FROM EPILEPSY IS POSSIBLE. TOGETHER WE CAN ACHIEVE THIS THROUGH RESEARCH

Faye Waddams ERUK supporter

We believe that a life free from epilepsy is possible but we can only achieve this through research. By making a donation to Epilepsy Research UK you can help us drive and enable life changing life saving research into epilepsy. If you would like to give a regular or a single gift, please donate online at epilepsyresearch.org.uk, call 020 3096 7887 or complete the relevant section on the Christmas card order form enclosed. Support us and help give more people with epilepsy help for today and hope for tomorrow.

“ What researchers do is so vitally important. They give people like me, living with epilepsy, hope.”

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FUNDRAISERS IN ACTION People fundraise and donate to Epilepsy Research UK for many different reasons and in many different ways.

Our work would not be possible without the incredible fundraising efforts of you, our supporters, or the hard work and dedication of our funded researchers. We would like to thank each and every one of you for driving and enabling our vital research. Here is just a small selection of the weird, wonderful and simply awe-inspiring things you have done to raise money for epilepsy research.

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PRUDENTIAL RIDE LONDON SURREY 100

MILE CHALLENGE

Our enthusiastic Ride London Surrey 100 team included our Chair of Trustees Professor Matthew Walker and fellow Trustee Mary Gavigan who both took on this 100 mile challenge. Professor Walker says, “ I am a neurologist, specialising in complex epilepsy. I see many people whose lives have been devastated by epilepsy, but I have also met many inspirational people who raise families, hold down jobs and battle on despite having, sometimes, many seizures a day. Beyond that, I meet parents who provide exceptional care for their child with epilepsy and families who have to cope with the sudden and unexpected death of a loved one with epilepsy. For all these people, I cycled the London-Surrey 100 for Epilepsy Research UK.�

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GREAT NORTH RUN

What a fantastic day at the Great North Run as 30 dedicated members of #TeamERUK took to the streets of Newcastle for this epic half marathon. We had such a brilliant time cheering on the team and huge congratulations to everyone who took part! Dan Allinson was running in memory of his brother Chris, he says:

“ My hope is to help raise as much money as possible to support life changing research in the field of epilepsy, so that hopefully one day others don’t have to go through what my family has been through these past few months.”

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NINE ULTRA MARATHONS CHRIS DUNN-VEALE Chris Dunn-Veale has had a busy 2019. On Saturday 28 September he completed the North Downs 50km Challenge, his last of nine ultramarathons, clocking up a total of 856km this year.

Why? You may well ask.

This colossal effort was all in aid of fundraising for Epilepsy Research UK and in memory of Chris’ good friend Jonny Everett, who sadly passed away due to epilepsy five years ago.

“He was 21 years old and just two weeks away from his 22nd birthday. He came home one evening and said goodnight to his parents. Unfortunately, his mum came in to wake him the next morning, but he had passed away. It was just a complete shock.”

During the challenge Chris pushed himself to the limit; he was forced to pull out at the 58th kilometre of the 100km Jurassic Coast Challenge due to mental exhaustion. Determined to make up the lost kilometres, he immediately signed up to two half-marathons – the Salisbury Race for Men and the Salisbury 54321 Half. Completing these races made up the 42km and put him back on track for the full distance.

Chris’ fundraising efforts do not stop with his back to back ultra-marathons as he is on a personal mission to raise £10,000 for ERUK. At the time of writing, he has raised over £8,000 of the total.

Chris’ tireless campaigning and championing of our cause has had an immeasurable impact this year. We are so fortunate to have him on-side. Thank you Chris from all of us at #TEAMERUK.

An incredible

£8,000 raised

“ After Jonny’s death I just thought - I need to do something.

Whether it’s funding research, helping those who are suffering with the condition, or supporting the carers of people with epilepsy. It can happen to anyone: females, males, children, or the elderly.

So hopefully, if I can push things forward just a little bit, that would be good.”

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OSCAR’S FUN DAY FOR ERUK “ For the first time in his life, Oscar’s epilepsy became a positive thing; not just something that involved hospitals, doctors, tests and emotionally tough times.”

Oscar was diagnosed with focal epilepsy in December 2017 after having regular seizures. It has had a huge effect on his learning, behaviour, confidence and friendships. Family and friends at the local pub in Leeds decided to stage an event together in support of Epilepsy Research UK. Over 300 members of the local community came out to show their support.

A brass band, Leeds United FC, BBQ and gin stalls all contributed to the fundraising which raised an incredible £2,500 for epilepsy research. “The day gave all our family and friends an opportunity to help and show how much they care”.

An incredible

£2.5k raised

CATHERINE’S DECADE OF SUPPORT FOR ERUK On 25th September Catherine Booth and colleagues from A2 Dominion housing association set off on their sponsored 10k walk around Virginia Water in aid of Epilepsy Research UK. This is just Catherine’s most recent activity in a long history of generous support for research into epilepsy.

Since 2011, Catherine has raised over £8,000 for our cause, with regular fundraising activities such as cake sales, tombolas and fun days. Along the way she has been kindly assisted by her family

and the A2 Dominion residents. Catherine has also successfully persuaded her employer, A2 Dominion, to match fund on a number of her fundraising occasions and this year she was instrumental in having ERUK awarded ‘Charity of the Year’ by the housing association.

Thank you Catherine for all your sterling and much appreciated efforts.

“ My son Nathan was diagnosed with epilepsy at three months old. Nathan is now 10 and continues to have regular seizures. We have never had a clear diagnosis – Nathan has undergone brain surgery and tried many medications, some with nasty side effects. When Nathan was one year old, I decided I needed to do something positive. It was then that I decided to start fundraising for Epilepsy Research UK, who do some amazing research in the field of epilepsy. Without research, the many varied forms of this debilitating condition will continue to badly affect people’s lives.” – Catherine Booth

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FUNDRAISING IN MEMORY A NEW GENERATION

We are so fortunate to have many family and friendship groups that join together to fundraise with such commitment to support our research. This summer we were amazed by the initiative of young Charlie, age just 8, to follow the example of his parents Ricky and Danielle and take on his own fundraising challenge for ERUK. Charlie set his heart on climbing Scafell Pike, the highest point in England, to raise funds for research in memory of his big brother Ollie. Despite torrential rain, Charlie successfully climbed Scafell Pike on 8 June along with his dad Ricky, uncles Mick and Greg, and cousin Alex. Many congratulations to Charlie and family for making it to the top despite the weather, and for raising an amazing ÂŁ1,159.

WEEKEND WARRIOR

An amazing

ÂŁ1,159 raised

Kevin Graham took on one of the ultimate endurance events at the London Triathlon this summer, entering the Weekend Warrior category. Kevin completed an astounding four triathlons over the course of the weekend - the Sprint, Super Sprint, Olympic and Olympic Plus distances! His brother Stephen also completed the Sprint and Olympic Plus distances so together over the course of the weekend they swam, cycled and ran a combined total of 298.9 km! Huge thanks to Kevin and Stephen for their fundraising for the Andrew Graham Memorial Fund.

LIBFEST

What a truly amazing day supporting three charities. The festival was set up to remember Liberty Baker who was tragically killed in 2014. We were honoured to be named as a beneficiary of the event in 2019 following the devastating loss of Ella Greaney, the daughter of Brigid and Mick Greaney who were close friends with the family of Liberty Baker and helped organise the festival over the years. The ERUK team went along with our charity stall and had a brilliant day! What an incredible event! Jo Finnerty and Maxine Smeaton, CEO went along to the cheque presentation evening which took place recently. It was a hugely emotional evening for all and we are ever humbled by the generosity of people who give so much in the wake of such immense tragedy. This gift is a tribute to the lives of two very special young women who are gone but never forgotten by this astonishing community of Witney friends and family.

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TEA IN THE MARQUEE

On a beautiful sunny day in August ‘Tea in the Marquee’ celebrated the life of Morgan Christie who tragically passed away last year. A group of Morgan’s friends thought that a music festival would be the perfect way to remember Morgan as they had always gone to concerts and festivals together. This was the second year of the event’s existence and to quote Carly Cargill, one of the organisers,

“ We are all just so overwhelmed with the support our group of friends and, of course, Morgan’s family have received. It’s very important to all of us to raise money, but most importantly awareness of epilepsy. We never thought that it could have such a huge, heartbreaking impact.”

A massive

£7,000 raised

A massive £7,000 was raised by this incredible group of friends and through support from local businesses and individuals who donated raffle prizes and gave of their time and services.

Thank you to all of you from ERUK.

CHARITY OF THE YEAR: THINKING OF NOMINATING US AS YOUR CHARITY OF THE YEAR? If you are thinking of nominating Epilepsy Research UK as your ‘Charity of the Year’, then look no further. Just get in touch with georgina.roberts@eruk.org.uk, our Corporate Partnerships Manager.

GEORGINA ROBERTS Corporate Partnerships Manager

We have many fundraising events and challenges which would provide an entertaining and exciting team experience. Alternatively we can assist you in bespoke fundraising events too. There are many ways in which your business or work place can make a difference, so please do get in touch if you would like to help improve the lives of those living with epilepsy. We look forward to hearing from you.

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JENNY MARSTON AND SCOTT GAULD who

completed Land’s End to John O’Groats

THANK YOU

JUDE LEONARD who did 10k a day through August

To all our supporters for taking part in fundraising events to support our work

NATHON LIPTROT Man v Mountain Challenge

AIMIE TAIT Skydiver

ELLA’S ARMY Berlin Marathon

KAREN AND ELIZABETH THOMPSON Hyde Park 5k

FEELING INSPIRED TO JOIN #TEAMERUK? There are plenty of opportunities to join us in one of our sporting or challenge events.

Whether it’s a 5k fun run or a 100km ultra challenge – there is something for everyone!

For more details please email Jo at jo.finnerty@eruk.org.uk or visit our website at epilepsyresearch.org.uk

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“ We look forward to a time when epilepsy has less impact on people’s lives. It means so much to us that through a gift in our Will we can contribute to a better future for people with epilepsy.”

HOW A GIFT IN YOUR WILL CAN HELP RESEARCH Gordon and Gill’s family have been greatly affected by epilepsy. In the hope of a future where epilepsy can be safely controlled they have remembered Epilepsy Research UK in their Will.

Gifts in Wills, or legacies, make an immense difference to our research, funding in some years between a third and half of our activities.

When thinking about your Will, after you’ve looked after your family and friends please do consider leaving a gift to Epilepsy Research UK. Everyone who leaves a gift to the charity, however large or small, will be making a real difference to our work.

Taking up our Free Wills offer is a very simple process

WOULD YOU LIKE HELP TO WRITE YOUR WILL? As members of the National Free Wills Network we can offer our supporters the opportunity to get a simple Will written, or an existing Will updated, by a local solicitor at no cost to you.

Phone us on 020 3096 7887 or email shona.scott@eruk.org.uk and we will arrange for the National Free Wills Network to send you a pack with details of at least two solicitors local to you taking part in the scheme. You can then make your own appointment direct with the participating solicitor of your choice who will draw up your Will for you.

CHRISTMAS SHOPPING Remember that you can raise funds for Epilepsy Research UK while shopping online. Shop through Give as you Live, easyfundraising or smile.amazon. co.uk and select Epilepsy Research UK as your chosen charity, and donations will automatically be generated for ERUK at no cost to you.

CHRISTMAS CARDS Our new range of Christmas cards is on sale now with a selection of traditional and fun designs to suit all tastes.

All profits from the sale of our Christmas cards support our work, so every purchase you make brings us closer to achieving our vision of a life free from epilepsy.

To place your order, complete the order form enclosed, visit our online shop at www.epilepsyresearch.org.uk/ get-involved/shop/ or call us on 020 3096 7887

A ‘THANK YOU’ TO LONDON LITES We are bowled over by the generosity of London Lites Urban Digital Media, who have given Epilepsy Research UK free space on their digital boards in locations all over London. We are extremely grateful to them for providing us with the opportunity to raise awareness of epilepsy and the work that we do.

An opportunity that we could never have afforded.

Thank you.

CAN Mezzanine 7-14 Great Dover Street London SE1 4YR

THANK YOU

to all who have supported us through donations, fundraising and awareness-raising activities this year. We remember those in our community who are no longer with us, and the family and friends who have chosen to remember their loved ones by supporting our research. Through your generosity and extraordinary fundraising endeavours you ensure that vital research continues so that together we can achieve a life free from epilepsy.

T 020 3096 7887 E info@eruk.org.uk epilepsyresearch.org.uk

Registered charity (1100394)