Eden Valley Hospice and Jigsaw - Autumn Newsletter 2025

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Hospice news

Autumn 2025

“The hospice gave my nana the farewell she wanted and gave me the support I needed when I had no idea what to do next.”

Samantha’s story is a powerful reminder of why our nurses need to be here every hour, day and night, all year round. Page 7.

My connection with the hospice began during my time at BBC Radio Cumbria. When the radio station was looking for a charity partner for the year, Jigsaw was the outstanding candidate. I realised very quickly what a special place it was and why it was held so closely in the hearts of our community.

I saw for myself the exceptional care given to local families and the dedication of the staff, and I was thrilled to be able to highlight that through what became a very successful partnership, which is still talked about today.

My involvement with Eden Valley Hospice and Jigsaw continued when I joined the Board of Trustees in 2023. The role is entirely voluntary. There’s no payment for my time or commitment. I do it because I deeply believe in the importance of the work - providing the best possible hospice care and the dignity that brings to people at the end of their lives. It’s a privilege to contribute to such meaningful work, and I’m proud to support an organisation that makes such a profound difference in our community.

Now, as Chair of Trustees, I’m looking forward to providing more support with our dedicated Board of Trustees, who also give their time freely to try to ensure local families can receive the care they need now and for years to come.

On behalf of the board and everyone here at the hospice, I’d like to thank Christine Weaving as she steps down as Chair of Trustees. Christine’s incredible leadership played a pivotal role in guiding the hospice through a time of significant change, ensuring it remains well-run, financially sound and ready for the future. They are big shoes to fill, and I’ll do my very best to carry her legacy forward.

Mark Elliott

Future-proofing our hospice

Taking care of our hospice environment is crucial if we’re to take the best care of patients and their families today and for years to come. That’s why, last year, with the help of extra government funding, we began a phased project to replace parts of our plumbing that are over 30 years old.

Aged copper piping and an outdated water system would soon pose a health risk and were already driving up energy costs. Now, with much of the work complete, we can be sure of a reliable, safe water supply. And because we installed more point-of-use heaters, we’re doing our bit for the planet (and our budget!) by using less electricity.

Several leaks were uncovered and fixed in the process, removing any risk to electrics and the chance of flooding - our water bills will benefit too.

The adventures continue for our youngest patients

Thanks to a £35,000 grant from the Wooden Spoon Charity, our youngest patients and their families can keep making memories with the hospice. The much-needed funding is helping us buy a new Jigsaw vehicle to replace our old minibus, so children can enjoy fun days out in more comfort. Our old vehicle brought so many smiles, thanks to the expert help and generosity of Bryan Fell Motors always managing a last-minute fix before the next adventure. Now we can look forward to many more!

“We welcomed the government’s announcement in December of a £100 million capital investment in hospices over the next two years. Last year, we received £94,735.46 from the fund, which has already been put to good use.

We invested in behind-the-scenes essentials, such as IT security and plumbing infrastructure, and took another step towards a more energy-efficient building with additional solar panels.

We’re expecting a further grant in the coming year, which the government will restrict to building improvements, and we’re planning to use it for refurbishing patient rooms and bathrooms.

It will also allow us to expand our renewable energy and continue creating a sustainable future for the hospice. While not all the upgrades are visible, they’re vital to making sure our patients and their families continue to receive comfort and care in a safe environment.”

From contractor to committed supporter

Jim Main had never set foot in a hospice before he began installing a new roof-mounted solar energy system here at Eden Valley Hospice and Jigsaw. And he soon saw there’s much more to hospice care than meets the eye.

“Hospices are places we all know about but none of us really want to think about. We assume they are some kind of hospital, and that it’s all about end-of-life care. My experience over the last two years has shown me otherwise. One thing that really struck me was how uplifting the place is.”

“It really opened my eyes and changed my whole perception.”

It was the small things that made the biggest impact on Jim, like the way staff shared gentle humour and empathy in the most difficult moments, and how work sometimes had to pause, allowing family and friends to have silence while they said their last goodbyes to a loved one.

“I got to know many of the staff who work at the hospice, and it drove home the fabulous work they do every hour, every day. I wanted, and want, to help in any way I can to allow Eden Valley to continue their amazing support in an ever-harder world.”

Inspired by patients, their families and the hospice team, Jim took on the London Landmarks Half Marathon – a race that had been on his wish list for a while. And he put as much effort into his fundraising as he did his training.

Recruiting family and friends to help create some spectacular hampers, Jim set about raffling all ten, raising over £2000 – something he later learned put him in the top 10% of fundraisers for the entire race.

“I came around 11,000th out of 24,000 runners, but knowing I was one of the top fundraisers was cooler than getting the place! ”

Jim is no stranger to supporting good causes, having run marathons, taken on a 500-mile cycle ride, and jumped out of a plane. And he’s already thinking about what’s next!

Thanks to Jim and his team, we’re one step closer to a sustainable future, already saving money on energy that we can reinvest in care. And Jim’s incredible fundraising will help even more people get the support they need. We hope Jim will remain a friend to the hospice for many years to come.

Turn to page 9 to discover your next adventure!

Live well, your way

We all want to live as well as possible for as long as possible, and our Living Well Services are designed to help everyone make the most of the time they have.

Everyone is welcome, with or without a connection to the hospice.

Whether you’ve been diagnosed with a life-shortening condition, care for someone who has, or are coming to terms with losing a loved one or friend recently or long ago, we’re here for you.

Neuro Living Well Programme

Understanding, expert advice and practical ways to live as independently as possible for anyone with a neurological condition, and their carers.

You’ll be amongst friends when you join our six-session wellbeing programme. Come for the wellbeing activities, symptom management tools, nutrition advice and lunch, and leave feeling understood, supported and confident about what’s next.

To find out more, please call 01228 810801 or email livingwell@edenvalleyhospice.org

We hope to meet you soon!

Simply ask your healthcare professional to refer you.

Comfort Café

Drop in whenever you like!

A warm, welcoming space for anyone bereaved, whether known to the hospice or not, to share experiences and find support with people who understand.

Join us for tea, cake and a chat, or simply sit quietly in the company of others. Whether your loss is recent or long ago, you’re not alone.

- The Communitea Hub, Wheatsheaf Lane, Wigton, CA7 9DY (behind Greggs) on the second Thursday of every month from 10am to 12pm.

- Brampton Community Centre, Union Lane, Brampton, CA8 1BX on the fourth Thursday of every month from 10am to 12pm.

Walk & Talk Group

Just turn up – we’ll see you there!

Support, connection and a natural wellbeing boost for people coping with loss, whether or not you’ve used hospice services before.

Come along for a gentle walk alongside others on a similar journey. We’re here for the companionable silences, the

difficult days when you need to talk and the times when a friendly face and fresh air are just what you need.

- Chance Park, Carlisle on the first Tuesday of every month at 11am.

- Hammonds Pond car park (off Blackwell Road), Carlisle on the third Tuesday of every month at 11am.

- Castle Park, Penrith on the third Thursday of every month at 11am.

Baby and Toddler Group

No need to book – just drop in!

Free ‘stay and play’ sessions for infants and young children with life-limiting conditions or complex medical needs – open to all, no need for a referral or previous hospice support.

Whether you bring the whole family or come along with your child, enjoy two hours of fun everyone can join in. In the home-from-home surroundings of Jigsaw, Cumbria’s Children’s Hospice, you’ll be part of a supportive community where everyone feels welcome.

- Jigsaw, Durdar Road, Carlisle, CA2 4SD on the last Thursday of every month from 10am to 12pm.

The Saturday Club

A social space for young adults aged 16 to 35 living with a life-limiting condition.

Whether you’re already part of our community or joining us for the first time, you’ll be welcomed by other young adults just like you. No pressure, no judgement, just a space to meet new people, get involved and spend time with others your age who understand.

- Jigsaw, Durdar Road, Carlisle, CA2 4SD on the first Saturday of every other month from 2pm to 4pm.

If you have any questions about any of our sessions, please email: livingwell@edenvalleyhospice.org

“It’s hard to imagine what families like mine would do if the hospice was no longer there.”

Nana Lou and her granddaughter Samantha were best friends. As a child, Samantha spent most days with her nana, and they were never happier than when they were baking together.

Their bond stayed just as strong as Samantha grew up. Living around the corner from each other, they were inseparable. So when Louise’s breathlessness turned out to be lung cancer, Samantha did the only thing that felt right: she left her job and became her nana’s full-time carer.

“ Nana was just how you’d hope a grandparent would be – everything she did was for me and my daughter. And though she was fiery and always said what she thought, she had us wrapped around her little finger!”

That’s why when Louise was adamant she didn’t want to hear about treatment, Samantha knew she meant it. And she knew her nana’s determination to outlive the year she’d been given meant she probably would!

Fourteen months later, Louise started deteriorating quickly. Samantha was struggling to keep her comfortable, and getting her about the house was becoming impossible. That’s when she asked for help.

“ The palliative care nurse told me I’d done an amazing job, but it was time for some help from the hospice. It felt daunting, especially because nana always said she didn’t want to go there.

But from the moment Samantha walked into Eden Valley Hospice, she realised it was nothing like the clinical, depressing place she was expecting. Straightaway she knew it was the right decision, and she’s certain Louise would agree.

“ When I got to the hospice and saw nana comfortable in bed, a massive weight lifted.”

“ The whole team was there not just for Louise, but for my daughter and me too. They’d check on how we were doing. And when they saw my daughter was struggling, they brought her a comfort blanket and talked to us about hospice bereavement care. It was a nice feeling knowing we had that support.”

One of the things that meant the most to Samantha was still being able to spend time with her nana whenever she wanted - sitting, chatting and not having to worry about the next dose of medication or what else needed doing. By now, Louise couldn’t speak, so one of our nurses printed some pictures to help Samantha and her nana say the things they wanted one last time.

“ It was nice to be a granddaughter again, not a carer. But I never felt like nana had been taken off me. The nurses always asked if I wanted to be involved in her care. I’ll always be grateful for that.”

The pair’s bond was so strong that when Samantha left the hospice one evening, something told her to go back. And thankfully she did.

“ Nana spoke her first words in a long time in her final few hours. She told me she’d like something to eat, so I fed her some yoghurt. And just as I was leaving, she said, ‘I love you.’”

Louise slipped away peacefully with three nurses by her side after Samantha left.

“ I wasn’t with nana right at the end – it was what she wanted. But I know she was well cared for, we both were. The hospice gave my nana the farewell she wanted and gave me the support I needed when I had no idea what to do next.”

Knowing the hospice relies on its community for 80% of its care costs, Samantha has gone on to raise money to help keep hospice care in her community.

“ I would have been lost without Eden Valley Hospice and so will always try to raise money for the hospice and the families who need its support.”

“ If I could share one thing with someone in my shoes, it would be: trust the hospice. You’re not giving up, you’re accepting the help you need for you and your loved one. And it’s the right decision.”

Christmas begins in our shops Christmas with the hospice

Turn your clutter into care

A pre-Christmas clear-out is the ideal way to make space and turn your clutter into a gift that keeps on giving.

By donating your pre-loved items to our shops, you’ll help someone find the perfect present at a reasonable price and help keep hospice care in your community too. You can drop off your pre-loved items at any of our shops or get in touch if you’d like to donate a larger item of furniture that you’d like collecting.

Call: 01228 549473

Visit: www.edenvalleyhospice.org

Scan the QR code opposite

Give more meaningful gifts

Shop with us this festive season and put presents under the tree that help give a family close by the gift of care this Christmas.

Find the perfect present in one of our four shops or our online store. Got a Charity Shop Gift Card? Spend it with us!

Visit us at:

• Lonsdale Street, Carlisle

• Lowther Street Bookshop, Carlisle

• Madford Retail Park Furniture Shop, Carlisle

• Devonshire Street, Penrith

• Ebay: Search edenhospice

Relive Christmas Day carols made possible for our patients and visitors thanks to people like you!

Last Christmas, carols filled our coffee lounge with the help of a borrowed piano and some musical visitors. Everyone joined in the sing-alongs and together we made memories that will stay with loved ones a lifetime.

Reindeer Run

Light up a Life

Light up a Life is a special way to celebrate the lives of loved ones no longer with us while helping keep hospice care at the heart of our community. Every gift keeps their memory shining and lights the way for families facing some of their darkest times.

Alongside the meaningful appeal, Light up a Life events at our hospice and Carlisle Cathedral are a much-loved beacon of support for patients, families and caregivers. We invite you to donate in celebration, join us in remembrance, and keep a loved one’s memory alive in the care you make possible for others.

Join us for our two events, the first at the hospice on 23rd November at 4.30pm and the second at Carlisle Cathedral on 5th December at 7.30pm.

The Jigsaw Reindeer Run is trotting back to town, and we’re inviting schools to join in the fun for your local children’s hospice.

Run, walk, wheel, dance, skip – it’s up to schools how and when they get involved over the festive period. When your school signs up, every child receives an antler headband with a sponsor form, as well as a certificate afterwards to celebrate their efforts.

If you’re part of a teaching team and would like to know more, or know of a school that might be looking for some meaningful festive fun, please visit our website.

Winter Raffle live now!

Win up to £1,000 just in time for Christmas. Tickets are £1, and each entry into the draw helps our care go further for local families.

Buy your tickets now on our website or visit one of our charity shops or the hospice.*

Make your 2026 New Year’s resolutions count

Test your limits with a hospice challenge so local families can turn to us when they need support.

• Run Carlisle 22nd March 2026

• Paris Marathon 12th April

• Keswick to Barrow Walk 9th May 2026

• Bikes Boats Boots 9th May 2026

• Edinburgh Marathon 24th May 2026

• Gelt Gladiator 14th June 2026

• Great North Run 6th September 2026

For more information about any of our events, or to let us know of something you’re planning, please email fundraising@edenvalleyhospice.org

*Entrants

Speaking up for fair care in every community

Earlier this year, our Chief Executive, Julie Clayton, joined Hospice UK and Together For Short Lives (the national voices of hospices) at Parliament for the launch of a landmark report highlighting the barriers to end-of-life care in rural areas.

Bringing Care Closer to Home shines a light on the stark realities faced by remote and rural families, where long, costly journeys, delays in pain relief, and a shortage of skilled staff can stand in the way of the end-of-life care they need and deserve. Not only does the report call for urgent action, but sets out the way forward for building a system that delivers high-quality end-of-life care for everyone, wherever they live.

Speaking directly to MPs, Julie reiterated feedback from those on the frontline delivering end-oflife care across Cumbria, including community teams, district nurses, ambulance services and our hospice at home colleagues.

But it was Harvie and Barney – mum and dad to Rafferty – who moved the room. Sharing their experience of caring for a child with complex needs in rural Cumbria, and how much they rely on Jigsaw for care and respite, reminded everyone why this work and this conversation matter so much.

“ Sharing our experiences helps decision-makers understand the challenges our community faces. We also shared Ella and Gibson’s stories with Together for Short Lives for its report on support for children with life-shortening conditions. And we’ll continue to support efforts to protect the Children’s Hospice Grant, which is a vital lifeline for us and hospices across the UK.”

“The problems of raising a profoundly disabled child out here are now almost insurmountable.”

“Living remotely had always been a dream of ours. What we didn’t anticipate was our third-born arriving unexpectedly with a muscular condition, requiring extensive support, including a ventilator, feeding pump and a humbling amount of hospital and community input.

Rafferty is perhaps best pictured as a quadriplegic who will likely always depend on his wheelchaira situation totally unsuited to our small cottage on a hillside in East Cumbria. Even prior to Rafferty’s birth, life could be a challenge due to our location but it was offset by the beautiful views and different way of life. However, the problems of raising a profoundly disabled child out here are now almost insurmountable.

Alder Hey Children’s Hospital is two and a half hours away, with our nearest hospital at Lancaster over an hour – something that’s always in the back of our minds when Rafferty is unwell.

We’ve been fortunate to be awarded a continuing care budget, but finding carers here has been very hard. And whilst the NHS caters for us out here, it can be difficult for visitors to reach us, especially in the winter. In November 2024, a landslip resulted in the closure of our main route out of the dale.

What was 20 minutes to our nearest large village where Rafferty’s carer lives, we work, and our older

children go to nursery, is a 45-minute journey via single-track, gated roads. An additional 10-15 hours in the car each week increases Rafferty’s risk of aspiration and other complications.

In stark contrast to the difficulties of landslips, relentless appointments and hospital admissions, the help from Jigsaw children’s hospice in Carlisle is probably the single best thing that has happened to us. Although an hour and a half away, they represent so much more than respite.

The staff are incredible in every way - compassionate, kind, enthusiastic and knowledgeable. Practically, they’re just as wonderful, trying to get us in on cancellations and allowing us to stay in the apartment above the hospice. And the family days are not only brilliant for all our children, but an excellent opportunity for psychological and peer support. Meeting others in similar situations is very comforting. Rafferty is supported and viewed as part of a family and not as a single patient, the power of which is almost impossible to describe in words.”

Harvie and Barney

Rafferty’s Story

Time to make a difference: Volunteer with us

Volunteers are at the heart of Eden Valley Hospice and Jigsaw, Cumbria’s Children’s Hospice, giving their time to help us be there for patients, families, and carers when they need us.

Whether at the hospice, in our shops, out in the community or as part of our fundraising team, we simply couldn’t do it without them.

Our volunteers help out for all sorts of reasons, like learning new skills or making new friends. Some want work experience, others do it for a wellbeing boost or to give back.

Love gardening? Let’s get growing. If finance is your thing, can we count on you? Happiest in the kitchen? Help us serve up something special.

AST goes the distance

Carbon neutral branding specialists, AST, are longtime supporters of Eden Valley Hospice and Jigsaw, Cumbria’s Children’s Hospice, and their creativity and generosity can be seen all around us. With their help, our spaces look brighter, feel more airy and offer a warm welcome to patients, visitors and staff. Working with AST also meant we kept our costs down, allowing more money to go towards caring for our patients and their families.

Some volunteers help out every week. Others support ad hoc events or specific projects that suit their skills and the time they have. Like Anthony Ferguson who volunteered his design skills to refresh our hospice logo. Jonny Latta, who provided one-to-one coaching sessions for team leads. And Nick Jackson, who lent his experience to help us think through our future services. No matter when, where or how you join us, you’ll be welcomed into a vibrant, friendly community of likeminded people.

If you’d like to share your skills every now and then or get involved in regular volunteering activities, we’d love to hear from you.

Please email peopleservices@edenvalleyhospice.org , call 01228 810801 or visit our website and fill in a short form. We’ll be in touch!

Improving end-of-life

We’re committed to the best end-of-life care possible for everyone. That’s why over the last year, we’ve taken part in national research projects to improve it. The CHELsea II Trial focused on hydration at the end of life, while the C-POS study was all about person-centred care for children with life-shortening conditions.

Our commitment to excellence was recently recognised nationally when the Eden Valley and Jigsaw team were Highly Commended at the 2025 Palliative Care Awards for our outstanding approach to staff development.

Read more about the impact of our research: Scan the QR code opposite

care nationally

“ Eden Valley Hospice has been recognised for its strong culture of staff development in adult and children’s palliative care. Despite limited resources, they prioritise progression through structured training, mentorship, and leadership opportunities, fostering a collaborative learning environment. Their commitment to career growth, inclusion, and sustainability drives excellence in care.”

Palliative Care Awards 2025 Judge’s comments.

As annual sponsors for our Bikes Boats Boots events, AST helps ensure that every pound raised through the event can be put towards continuing that care. And this year, they quite literally went a step further, not only taking on the challenge, but stepping up to play host to the event base too. We’re incredibly grateful for their ongoing support and all they help make possible for local families.

our website to discover more.

Scan the QR code opposite Visit: www.edenvalleyhospice.org

24 hours of care powered by businesses like yours

What is it?

Club 24 is a simple yet powerful way for businesses to support local families – funding 24 hours of expert hospice care for those facing life’s toughest moments. Simply pledge £73 a month or £877 a year and give one family 24 hours of life-changing care.

It’s that simple. You can donate from your profits or fundraise with staff, customers, or clients – whatever works best for your business.

What opportunities are there for my business?

As a member, you’ll enjoy:

• The chance to network with like-minded businesses who care about their community.

• Priority access to meaningful employee volunteering opportunities perfect for team building.

• Exclusive ways to get involved, share your story and show the difference you’re making.

Club 24 isn’t just good for business – it gives employees that feel-good factor too. Together, you’ll be part of something bigger giving back to the community you all care about.

Will you power 24 hours of hospice care so a local family can make every minute count?

Join a growing movement of businesses showing staff, customers, clients and their local community they care.

Visit: www.edenvalleyhospice.org and search ‘Club 24’ Email: emma.rogerson@edenvalleyhospice.org

Bike Boats Boots 2026 is now open for entries. Gather family, friends and colleagues for an action-packed day in The Lakes! Visit
Jonny Latta, British Gas, volunteering in the gardens
Carol Green, Spiritual Volunteer

Your Hospice Heroes

From South Australia to Barcelona to a dancefloor in Grange-over-Sands, our supporters really do go the distance to keep our care going for local families. There are too many to mention here, but we’re so grateful for every single one of you – thank you!

A lottery win making more moments with loved ones possible

Lynda and her husband kept that holiday feeling a little longer by winning big on our lottery just two days after flying home. The couple have been playing the hospice lottery since it began, and after several smaller prizes, they’re thrilled to finally win the £1,000 jackpot! They intend to put it to good use, taking another holiday later in the year to visit their son. By playing the hospice lottery, Lynda and her husband are helping families make the most of every moment together – and now, it’s helping them make memories too.

“ How lovely that something has come back from supporting something so worthwhile.” Lynda

Visit: www.edenvalleyhospice.org/support-us/lottery or scan the QR code opposite

Gail and Mark go the distance for hospice care

Loyal supporters Gail Rajjayabun and Mark Drummond are no strangers to hospice fundraising, after the hospice cared for Mark’s mum at the end of her life. But this year, they decided to go the extra mile – literally! The globe-trotting pair set their sights on the Barcelona Half Marathon, the Lakeland 50, the Great North Run and the Serpentine Swim – with Gail adding the London Marathon to the ever-growing list. Conquering their challenge will be an incredible feat, matched by their unwavering kindness and commitment to making life a little better for patients and the people they love during the toughest times.

From pulling pints to pulling their community together for local families

Since 2021, the Arroyo Arms in Carlisle has been bringing the community together through its regular fun days, raising an incredible £8,231.67 for the hospice along the way. From football and darts matches to raffles and more, locals dig deep to support their hospice and the families who rely on us.

This year, on the run-up to the annual fun day, Jessica – landlady Marie’s daughter, and pub regular Russ, took the fundraising to new heights –1,000ft above the Borrowdale Valley via the Honister Infinity Bridge. What a wonderful show of community spirit!

Lake District Estates take on a challenge to remember

In memory of their much-loved colleague and friend Steven, 19 members of the Lake District Estates team took on the Lake District Ultra Challenge 10k, raising over £3,000 for the hospice. And they showed no signs of slowing down when they tackled the Morecambe Bay Walk in July. Together, they’re helping Steven’s memory live on through the care they’re making possible for others.

Steve’s pedal power helps children and their families keep going

Steve Alecock took on the ride of his life earlier this year in memory of his nephew Joe who attended Jigsaw for over two decades. In a bid to match the determination Joe showed throughout his life, living with Duchenne muscular dystrophy, Steve challenged himself to cycle The Great Ocean Road – a 675km journey from Mount Gambier in South Australia to Melbourne. Thanks to Steve’s incredible journey, more families like his can find comfort, care and make precious memories with Jigsaw.

Dancing friends spread smiles beyond the dancefloor

Every other Friday, the Friday Night Dancers get Grange-over-Sands jigging. And for the last three years, they’ve helped bring joy to children at Jigsaw too by donating their surplus funds from the night. The group of friends have generously gifted £1,200 over the years, showing how quickly pennies and pounds add up to make a big difference.

“ We will never be

able to

thank the hospice enough for the amazing work

they

have done.” When Shannon’s mum Karen came to Eden Valley Hospice towards the end of her life, it gave the whole family a chance to make special memories. Now Shannon, her daughters Daisy and Lilah, and the rest of Karen’s family are helping other families have that same chance. The family kindly chose to donate the collection from Karen’s funeral to the hospice, and we’re incredibly grateful. Thank you so much! “ Daisy and Lilah had a special final day with grandma, and as tough as that day was, the staff at the hospice went above and beyond to make it special for the girls – from making memory teddies and messages with them, to gifting them special blankets and books. They’ll always have a special place in our hearts.” Shannon.

Wally’s support lives on

Colin (Wally) Wallace was an avid runner and took part in many marathons, raising money for the hospice. So son Paul, along with his sons – Josh and Sonny, felt it only right that Wally’s funeral collection came to the charity he cared about most.

Such was his love for the hospice and our team that he hoped to spend his final days with us. Now, his legacy will live on in all he and his family have done and continue to make possible for local families like theirs.

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