Our mission is to support families and improve outcomes for individuals affected by Dravet Syndrome and other rare genetic epilepsies in Ireland.
Our Vision
Our vision is that people with Dravet Syndrome and other rare genetic epilepsies achieve their potential and live full lives as equal and valued citizens.
Strategy 2025-2026
Aims and Objectives
Dravet Syndrome Ireland aims to support families and enhance outcomes for individuals with Dravet Syndrome and other rare genetic epilepsies by providing information resources, facilitating family networks, hosting educational and social events, advocating for affected persons and campaigning for better treatment access in Ireland.
Community
Nurturing our community in Ireland
Support
Providing financial, educational and social supports
Resilience
Our Strategy 2025-2026 To Increase Understanding and Support
Create a Brand Strategy to Increase Awareness Grow our Membership Strengthen our Organisation Grow Events for our Community Grow Family Support Grants
Create a Brand Strategy to Increase Awareness
Rebrand to become more relatable to all ages and ranges of rare genetic epilepsies
Use professional support to create a marketing plan to grow our reach Expertly create family and medical videos to grow understanding and awareness
Accessible
Be as accessible as possible to families affected by rare genetic epilepsies
Awareness
Increase awareness through all channels available to us
Reach Adults
Increase reach to the adult community living with rare genetic epilepsies
Strengthen our Organisation
Reach
Professional
Organisations
Reach out to our members with relevant expertise to help strengthen our charity
Use professional organisations willing to work with us on a Corporate Social Responsibility (CSR) basis
Clear Vision
Have a clear vision which is easy for everyone to identify with
Grow our events
Host events to meet our members’ needs
Host Annual Symposium with international experts to provide information resources to parents and caregivers
Host family events which build a sense of resilience and community for our members
Grow Family Support Grants
Support As Many Families In Our Community As Possible Utilise Social Media To Increase Our Reach
Encourage And Provide Assistance To Our Members With Applications Where Needed