Dravet Syndrome Ireland - Strategy 2025 - 2026

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Dravet Syndrome Ireland Strategy 2025-2026

Our Mission

Our mission is to support families and improve outcomes for individuals affected by Dravet Syndrome and other rare genetic epilepsies in Ireland.

Our Vision

Our vision is that people with Dravet Syndrome and other rare genetic epilepsies achieve their potential and live full lives as equal and valued citizens.

Strategy 2025-2026

Aims and Objectives

Dravet Syndrome Ireland aims to support families and enhance outcomes for individuals with Dravet Syndrome and other rare genetic epilepsies by providing information resources, facilitating family networks, hosting educational and social events, advocating for affected persons and campaigning for better treatment access in Ireland.

Community

Nurturing our community in Ireland

Support

Providing financial, educational and social supports

Resilience

Our Strategy 2025-2026 To Increase Understanding and Support

Create a Brand Strategy to Increase Awareness Grow our Membership Strengthen our Organisation Grow Events for our Community Grow Family Support Grants

Create a Brand Strategy to Increase Awareness

Rebrand to become more relatable to all ages and ranges of rare genetic epilepsies

Use professional support to create a marketing plan to grow our reach Expertly create family and medical videos to grow understanding and awareness

Accessible

Be as accessible as possible to families affected by rare genetic epilepsies

Awareness

Increase awareness through all channels available to us

Reach Adults

Increase reach to the adult community living with rare genetic epilepsies

Strengthen our Organisation

Reach

Professional

Organisations

Reach out to our members with relevant expertise to help strengthen our charity

Use professional organisations willing to work with us on a Corporate Social Responsibility (CSR) basis

Clear Vision

Have a clear vision which is easy for everyone to identify with

Grow our events

Host events to meet our members’ needs

Host Annual Symposium with international experts to provide information resources to parents and caregivers

Host family events which build a sense of resilience and community for our members

Grow Family Support Grants

Support As Many Families In Our Community As Possible Utilise Social Media To Increase Our Reach

Encourage And Provide Assistance To Our Members With Applications Where Needed

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