



![]()




We’re thrilled to welcome you to the world’s largest gathering dedicated to pulmonary fibrosis!
Whether this is your first Summit or you’ve joined us before, we’re so grateful to have you here with us in the vibrant city of Chicago this fall. This event brings together patients, caregivers, healthcare professionals, researchers, and advocates from across the country—and beyond—to learn, connect, and inspire one another. Your presence here helps drive our shared mission forward, and we can’t wait to spend the next few days together.





Let’s begin with some helpful tips about using this digital program. Look for the icons in the toolbar at the bottom of this program.
View in full screen. Click the X. We recommend viewing this program in full screen on desktop and mobile.

Use the search tool. Enter keywords to find something specific.

View the full program at-a-glance. Click “Grid View” to quickly scroll through the program’s pages.

Thursday
Exhibit hall opens 12:30 p.m.
Welcome Reception and Poster Presentation
5:00 p.m. - 8:00 p.m.
Friday & Saturday
Exhibit hall opens 7:00 a.m.
Breakfast 6:00 a.m. - 7:30 a.m.
Morning Break 10:00 a.m. - 10:30 a.m.
Clinical Trial Innovation Series (Lunch included!)
12:15 p.m. - 1:00 p.m.
Afternoon break 3:00 p.m. - 3:30 p.m.
Dine & Delight Networking Night 6:00 p.m. - 8:30 p.m. (Friday night only!)
Exhibit Hall Hours
Visit the Exhibit Hall to meet with industry representatives, medical centers, and patient advocacy organizations.
Thursday 12:30 p.m. to 8:00 p.m.
Friday 7:00 a.m. to 5:00 p.m.
Saturday 7:00 a.m. to 1:30 p.m


You are welcome to attend any session you’d like, unless it’s noted as a closed session. If you’re not sure what to attend, we’ve made color-coded reccommendations on each session. Use the legend below to help you plan your Summit experience!
Patients

Caregivers
Lung transplant recipient



8:00 a.m. - 4:00 p.m.
Earn CME, CE, and MOC credit at PFF Summit! This is a closed session designed for healthcare providers only. A separate registration is required in order to attend.
Register and view the program here!

8:00 a.m. - 4:00 p.m.
EARN CE credit at PFF Summit! This is a closed session designed for healthcare providers only. A separate registration is required in order to attend.
Register and view the program here!

12:00 p.m. - 1:00 p.m.


Location: Chicago X
Speakers: Boehringer Ingelheim’s Lungs&You Patient Mentors; Bernie Williams; Jennifer M. Dixon-Johnson, MSN, APRN, AGPCNP-BC
Join us on Thursday, November 13 for a special educational session featuring New York Yankees legend and Latin Grammy nominee, Bernie Williams. Williams, who lost his father to interstitial lung disease (ILD), will be joined by Boehringer Ingelheim’s Lungs&You Patient Mentors who are living with ILD, to share stories, speak to the emotional burden of ILD, and share how they’ve learned to embrace life beyond the scars of their diagnosis.
Seasoned nurse and nurse practitioner who brings a vast amount of personal and professional experience in dealing with chronic illnesses and the aftermath of receiving life-changing diagnoses, Jennifer M. Dixon-Johnson, will moderate the conversation. With over 20 years of experience, she looks forward to facilitating the discussion.

Following the panel discussion, Dixon-Johnson will lead a thoughtful conversation on the emotional impact of ILD, offering practical tools and compassionate guidance to help patients and caregivers navigate this aspect of the journey.
Doors open at 11:45 a.m., with lunch provided before the session begins promptly at 12:00 p.m. This event is exclusively for PFF Summit 2025 attendees who are patients or caregivers. Space is limited, and registration for this event is required. Spots are available on a first-come, first-served basis.
This event is presented in collaboration with Boehringer Ingelheim. The PFF does not endorse the company, its products, or its clinical trials. Views expressed during the event are those of the speakers and do not necessarily reflect those of the PFF.
1:00 p.m. - 2:30 p.m.

101
Location: Chicago IX
Session Chair: Tejaswini Kulkarni, MD, MPH
Speakers: Scott Staszak; Amy Hajari Case, MD; Carla Copeland, MD
• Who we are: An introduction to the PFF
• Pulmonary fibrosis 101: A beginner’s guide
• Alphabet soup: Understanding ILD terminology and abbreviations

For information on all of the PFF’s resources, please visit the Resources Desk located on the promenade on the main conference level.
3:00 p.m. - 4:30 p.m.

Location: Chicago VIII
Session Chair: Hyun Kim, MD
Speakers: Kevin Flaherty, MD, MS; Jessica Shore, PhD, RN; Ayodeji Adegunsoye, MD, PhD
• PFF Registry: How patients, caregivers, family, and lung transplant recipients can all participate in research
• Care Center Network: How healthcare providers and researchers work together to improve your care.
• PFF Scholars: How the PFF is supporting the future of PF research

Prefer a hard-copy of this program? Printed program books will be available for all attendees at the conference.
3:00 p.m. - 4:30 p.m.

The SILVER Series: As the PFF celebrates 25 years, learn more about your journey with PF
Location: Chicago IX
Session Chair: Lori M. Flint, BSN, RN
Speakers: Lori Reed, NP-C; Jenny Williams, PA-C; Nicole Davis, BSN, MPH, CCTC

• S - Symptoms and their management
• I – Interventions and treatments
• L – Life expectancy
• V – Vaccines and preventative care
• E – Energy and exercise
• R – Reliable resources: The dos and don’ts in navigating information and resources

Thursday | 5:00 p.m. - 8:00 p.m.

Kick off the Summit in style at our Welcome Reception & Poster Presentation where science, community, and conversation come together! Enjoy hearty hors d’oeuvres and cocktails as you mingle with friends and colleagues and connect with some of the brightest minds in PF research.
The exhibit hall will be lined with cutting-edge scientific posters, each staffed by the researcher who helped to create it. This is your chance to walk right up, ask questions, and hear the science explained directly from the experts themselves — no lectures, no barriers, just open conversation.
As the evening unfolds, we’ll celebrate discovery with the Poster Awards Ceremony. Ten outstanding posters will receive special recognition—and the winning poster’s researcher will present their work in a dedicated conference session on Saturday. It’s more than an opening reception. It’s your front-row seat to the future of PF research, paired with a warm welcome to the PF community.




8:00 a.m. - 10:00 a.m.


25 Years in Clinical Trials: Celebrating achievements, key learnings, and advancing care
Location: Sheraton-Chicago IV - VII Ballroom
Session Chairs: Ayodeji Adegunsoye, MD, PhD, FACP, FCCP; Hyun Kim, MD
Keynote speaker: Karen Mancera-Cuevas, DrPH, MS, MPH, CHES
Speakers: Ilene Hollin, PhD, MPH; Donna R. Dinkin, DrPH, MPH; Marilyn Glassberg, MD
• Welcome! Daily remarks and announcements
• KEYNOTE: Beyond representation: Building equitable clinical trials for all populations
• A patient-centered approach: The critical importance of endpoints
• The other side of the protocol: A patient’s clinical trial experience
• From setbacks to success: Learning from clinical trial failures and the road ahead
• Live Panel Discussion and Audience Q & A
10:30 a.m. - 12:00 p.m.


Tools for monitoring your PF: The role of imaging, lung function tests, and more
Location: Chicago X
Session Chair: Aahd Kubbara, MD
Speakers: Aahd Kubbara, MD; Tadashi Allen, MD; Renee Bergtold, MSc, RRT, RPFT
• Making sense of your high-resolution CT (HRCT)
• Interpreting the numbers: Understanding pulmonary function tests (PFTs) and their results
10:30 a.m. - 12:00 p.m.

Research in the pipeline: What might the next 25 years hold?
Location: Chicago IX
Session Chair: Murali Ramaswamy, MD
Speakers: Cathryn T. Lee, MD, MS; Imre Noth, MD; SarahCollins, CCRP

• The next chapter: Emerging research in ILD
• Decoding disease: The role of biomarkers in ILD and pulmonary fibrosis
• Your role in discovery: What to know about clinical trial participation 10:30 a.m. - 12:00 p.m.

advocates, and family
Location: Chicago VIII
Session Chair: Lanier O’Hare, PhD, CRNP
Speakers: Bridget A. Graney, MD; Julie Rossignol; Rick Tidwell; Brandi Ellis
• The evolution of caregiving: Key advancements over the last 25 years
◊ Community resources to help care for your loved one: Respite care, Meals on Wheels, and more
◊ Social acceptance of counseling and support groups
◊ Technological advancements: smartphones and apps
• Perspectives from the caregivers: Three personal stories of dedication and compassion
• Conversations and connections: Audience interactive discussion about caregiving facilitated by the panel

10:30 a.m. - 12:00 p.m.
Location: Sheraton IV-V
Session Chairs: Joyce Lee, MD; Chad A. Newton, MD
Speakers: Chad A. Newton, MD; Jeremy Katzen, MD; Janet Talbert, MS, CGC

• The cutting edge of precision medicine in ILD: What’s hot, what’s new
• Exploring the evidence: Genetic testing in ILD – friend or foe?
• Navigating the conversation: How to counsel patients during the genetic testing process 10:30 a.m. - 12:00 p.m.
Differentiating
PPF from
IPF: Lessons learned from the last 25 years and what we hope to learn in the next quarter century

Location: Chicago VI-VII
Session Chair: Justin Oldham, MD, PhD
Speakers: Kevin Flaherty, MD; Justin Oldham, MD, PhD; John S. Kim, MD, MS
• From IPF to PPF: The evolution of how we define and distinguish IPF from PPF
◊ How we began
◊ Where we are now
◊ What we need to know for the future of fibrosis care

12:15 p.m. - 1:00 p.m.


Location: Chicago VI-VII
Featuring: Boehringer Ingelheim; Chiesi Farmaceutici S.p.A.; MAVRIC-IPF
The popular Clinical Trial Innovation Series returns! In this session, enjoy lunch while learning about the latest developments in clinical trials for those living with pulmonary fibrosis and interstitial lung disease.
The PFF does not endorse the companies or its trials, and views expressed during the event may not reflect the views of the PFF. Lunch included!
1:30 p.m. - 3:00 p.m.

Location: Chicago X
Session Chair: Rebecca Smith, AAS, RRT, RPFT, AE-C
Speakers: Susan Jacobs, MS, RN; Kara Kotyuk, RRT-NPS

• Understanding oxygen therapy: How to get the oxygen you need
• Oxygen equipment and you: Guidelines for safe usage and maintenance
• Breathe on the go: Portable oxygen solutions for travel by car and air
1:30 p.m. - 3:00 p.m.

Location: Chicago IX
Session Chair: Dan Dilling, MD
Speakers: Anil J. Trindade, MD; Karen Smoot; Gary Johnson Sr.; Anita Clos, MA, MSW

• To transplant or not: Understanding the choices and challenges
◊ When ineligibility or the decision not to pursue is the path
◊ What to expect if you decide to move forward with a lung transplant
• Lung transplant patient panel: Insights and recommendations for before, during, and after

1:30 p.m. - 3:00 p.m.

Location: Chicago VIII
Session Chair: Patricia J. Sime, MD FRCP FACP ATSF
Speakers: Farah Madhani-Lovely, MD, MPH, MBA, FCCP; Scott M. Matson, MD
• The spectrum of ILD: Understanding the different types
• Journey to the right diagnosis
• Comparing ILDs: Key similarities and differences across types
1:30 p.m. - 3:00 p.m.
Location: Sheraton IV-V
Session Chair: Anthony J. Esposito, MD
Speakers: Jonathan Chung, MD; Flavia Castelino, MD; Anna Podolanczuk, MD

• Evidence in action: Translating updated treatment guidelines to patient care
◊ The Fleischner Society guidelines on quantitative CT
◊ A multi-disciplinary approach: Guidelines for treating connective tissue disease-associated interstitial lung disease (CTD-ILD) / systemic autoimmune rheumatic diseases (SARDs)
◊ Updated incidental findings: The ATS (American Thoracic Society) guidelines on ILA (interstitial lung abnormalities)
1:30 p.m. - 3:00 p.m.
Advancing care through clinical trials: Because every patient matters

Location: Chicago VI-VII
Session Chair: Hyun Kim, MD
Speakers: Mark Hamblin, MD, FCCP; Joyce Lee, MD; Alison DeDent, MD, MAS
• Expanding access: How to overcome enrollment barriers
• Reusing trial data: How a second look at data can drive breakthroughs in medicine
• Remote, rural, and ready: Designing clinical trials that reach every community

3:30 p.m. - 5:00 p.m.

Location: Chicago VIII
Session Chair: Steve Jones, BSc hons
Speakers: Kathleen Lindell, PhD, RN, ATSF, FAAN; Bridget Collins, MD; Kristin B. Highland, MD, MSCR; Erica Farrand, MD
• Discussing your diagnosis with loved ones: Guidance for all generations
• Living with ILD: Strategies for balancing home, work, and health
• Beyond the diagnosis: Relationships and family planning
• Representation matters: Engaging diverse representation in ILD research
3:30 p.m. - 5:00 p.m.


Location: Chicago X
Session Chair: Janell Reichuber, MSN
Speakers: Emilie Klemptner, MS, RD; Rebecca Smith, AAS, RRT, RPFT, AE-C; Lori M. Flint, BSN, RN
• Nutrition matters: Tips for managing medication side effects, GERD, and weight
• Fitness: The importance of pulmonary rehab and other forms of exercise
• Finding support: Emotional wellness and resources
3:30 p.m. - 5:00 p.m.

Location: Chicago IX
Session Chair: Rebecca Anna Gersten, MD
Speakers: Erica Dixon-Johnson, DNP; Dana Goo Holiona, LCSW; Rev. Pamela N. Floyd, MD, MPH, MDiv

• Finding support: Exploring social support and counseling resources for you and your loved one
• Honoring yourself, your peers, and your loved ones

3:30 p.m. - 5:00 p.m.
Location: Chicago VI-VII
Session Chair: Timothy Whelan, MD
Speakers: Jennifer Kolmos Applebey, RN, BSN ; Krishna Thavarajah, MD, MS; Rachel Potter, LCSW
• Fueling fragile lungs: The critical role of nutrition in advanced lung disease
• Pulmonary rehab in practice: Evidence-based gains in function and quality of life
• Mental health matters: Strategies for management and care
The

3:30 p.m. - 5:00 p.m.
Location: Sheraton IV-V
Session Chair: Aparna Swaminathan, MD, MHS
Speakers: Sonye K. Danoff, MD, PhD; Manoj Maddali, MD, MS; Jonathan A. Kropski, MD; Stephen Humphries, PhD
• From patients to people: The rise of personomics in personalized healthcare
• The power of proteins: Driving precision medicine with proteomic insight
• Clinicalomics uncovered: Making sense of multidimensional patient data
• The image speaks: Harnessing radiomics for precision diagnostics

Friday: 6:00 p.m. - 8:30 p.m.
Before you head out to explore Chicago’s nightlife scene, join your PFF Summit community for an evening designed just for you. The Dine & Delight Networking Night is your chance to relax, connect, and celebrate with fellow attendees in a warm, welcoming setting. The evening is hosted by Broadway star and PFF Board member, Julie Halston!
Enjoy a complimentary dinner featuring a variety of flavors, paired with live entertainment that sets the perfect tone for community. The evening brings together speakers, guests, and members of the PF community to share stories, laughter, and inspiration.
This isn’t just a meal; it’s a moment. A chance to build meaningful connections, continue important conversations, and create memories with people who understand the journey. Whether you’re here to network, to unwind, or to simply enjoy the company, Dine & Delight offers the perfect close to your conference day.





8:00 a.m. - 10:00 a.m.


Location: Sheraton-Chicago IV-VII Ballroom
Session Chair: Mary E. Strek, MD
Keynote speaker: James Fraser, PhD
Speakers: Jessica E. Shore, PhD, RN; Kevin Flaherty, MD; Nicholas Banovich, PhD; Susan Jacobs, MS, RN; Harold Collard, MD, MS
• Welcome! Daily remarks and announcements
• PFF Registry: Past lessons, present impact, future promise
• KEYNOTE ADDRESS: Unlocking the future: How Artificial Intelligence (AI) is transforming pre-clinical drug discovery
• Harnessing multi-omics: How molecular diagnostics is shaping the future of medicine
• Legislative advocacy in a changing climate: Challenges, progress, and hope for the future
• Live panel discussion and audience Q&A
10:30 a.m. - 12:00 p.m.

Location: Chicago VIII
Session Chair: Jennifer Wescoe Singley, M.Ed., NCC
Speakers: Bhavika Kaul, MD, MAS; Mary Porteous, MD; Cathryn T. Lee, MD, MS
• What are exposure-related ILDs? Causes and key consideration
• Resources for Veterans: What is out there and how to obtain
• Am I at risk? How to recognize if you have exposurerelated ILD and taking steps to limit further exposure
10:30 a.m. - 12:00 p.m.
Location: Chicago IX
Session Chair: Xiaoping Wu, MD, MS


Speakers: Dominic Paula, RN, BSN; Jamie Lederer, MSN; Shweta Sood, MD, MS; Jenny Williams, PA-C

• Navigating ailments: Bronchitis, COVID, pneumonia, and influenza in the setting of ILD
• Exacerbations or flares: When ILD rapidly deteriorates
• Dealing with illnesses and rejection: For lung transplant recipients
• Treatment and expectations: What to expect during recovery

10:30 a.m. - 12:00 p.m.

Location: Chicago X
Session Chair: Joyce Lee, MD
Speakers: Chad A. Newton, MD; Jennie Vagher, MS, CGC; Bess Flashner, MD
• Overview of familial pulmonary fibrosis (FPF)
• The role of genetic testing in those with FPF
• The role of testing and screening in family members
• What does your family need or want to know
10:30 a.m. - 12:00 p.m.
The innovators’ journey: Past breakthroughs and future visions

Location: Sheraton IV-V
Session Chairs: Amy Hajari Case, MD
Speakers: Sachin Chaudhary, MD; Toby Maher, MD, PhD; Sydney Montesi, MD
• Science in motion: Innovations in symptom management in ILD
• Innovations in advanced therapeutics and what lies ahead
• Transforming ILD care: Innovations in precision medicine and the road ahead
10:30 a.m. - 12:00 p.m.
in the pipeline: Paving the way for tomorrow’s breakthroughs
Local: Chicago VI-VII
Session Chair: Mitchell Olman, MD, MA
Speakers: Ksenija Bernau, PhD; Rebecca Anna Gersten, MD; Peter H. Schafer, PhD; Poster presentation winner

• Shaping the future: PFF Scholars making an impact
• Collaborative breakthroughs: The latest updates from the PROLIFIC Research Consortium
• Spotlight on Excellence: Presenting the winning poster’s research

12:15 p.m. - 1:00 p.m.


Location: Chicago VI-VII
Featuring: Avalyn Pharma; Insmed; Pulmonary Fibrosis Foundation
The popular Clinical Trial Innovation Series returns! In this session, enjoy lunch while learning about the latest developments in clinical trials for those living with pulmonary fibrosis and interstitial lung disease.
The PFF does not endorse the companies or its trials, and views expressed during the event may not reflect the views of the PFF.
1:30 p.m. - 3:00 p.m.

Comprehensive medical care: Managing common medical conditions that often occur with PF
Location: Chicago X
Session Chair: Harold Collard, MD, MS
Speakers: Lori Reed, NP-C; Paul Wolters, MD; Margaret Salisbury, MD
• Understanding symptoms: Identifying and managing them effectively
• The evaluation process for conditions related to PF: Why it matters and how it guides treatment
• Medical conditions in focus:
◊ Pulmonary hypertension (PH)
◊ Gastroesophageal reflux disease (GERD)
◊ Sleep apnea (OSA)
1:30 p.m. - 3:00 p.m.

Location: Chicago VIII
Session Chair: Kathleen Lindell, PhD, RN, ATSF, FAAN
Speakers: Lanier O’Hare, PhD, CRNP; Shivani Kumar, MD; Kathryn Fenwick, DNP; Rebecca Anna Gersten, MD

See description on next page

• Setting up your personal care team: What can your support system do to help, even from afar
• Anxiety and depression: How to identify and manage symptoms
• Palliative and hospice care: Understanding the differences
• Getting support: How to find the support that is right for you

1:30 p.m. - 3:00 p.m.

Location: Chicago IX
Session Chair: Devi Kumar-Nambiar, JD, MBA
Speakers: Kathryn C. Casey, JD; Devi Kumar-Nambiar, JD, MBA; Carson Lamb, JD
• What’s next? Your toolkit for how to navigate paperwork: advance directives, wills and trusts, bills, assets, death certificates, and more
• Securing what matters: Estate planning for you and your loved ones
• Understanding changes to Medicare
1:30 p.m. - 3:00 p.m.
Location: Sheraton IV-V
Session Chair: Ayodeji Adegunsoye, MD, PhD, FACP, FCCP
Speakers: Mary E. Strek, MD; Patricia J. Sime, MD FRCP FACP ATSF
Panelists: Katherine Partyka, MD; Ayodeji Adegunsoye, MD, PhD, FACP, FCCP; Xiaoping Wu, MD, MS

• Building a successful clinical career in ILD: Challenges, opportunities, and strategies
• Navigating your research journey in ILD: Key strategies for career growth and impact
• Real cases, real-time wisdom: Fellows and residents present challenging cases to a panel of experts

1:30 p.m. - 3:00 p.m.
in the ICU
Location: Chicago VI-VII
Session Chair: Ross Summer, MD
Speakers: Ross Summer, MD; Tejaswini Kulkarni, MD, MPH; Corey D. Kershaw, MD, FCCP; Rade Tomic, MD

• When time matters most: Managing rapidly progressing ILD in the ICU
• Crisis in the lungs: Acute exacerbations in IPF
• From viral storm to fibrosis: Navigating COVID-related ARDS and ILD
• Immediate post-transplant care: Essentials from surgery to ICU
3:30 p.m. - 5:00 p.m.

PF medications explained: What to expect and making sense of the benefits and risks
See description on next page
Location: Chicago X
Session Chair: Justin C. Hewlett, MD
Speakers: Timothy Clifford, PharmD; Bridget A. Graney, MD; Gautam George, MD

• Your medications: what to expect
• Antifibrotic treatments: Weighing the options
• Managing connective tissue disease-related ILD (CTD-ILD) with medications
3:30 p.m. - 5:00 p.m.

Join us! Participate in volunteer efforts at the PFF through legislative advocacy, Hill Day, fundraising, and support groups
Location: Chicago IX
Session Chair: Wayne Pan, MD, PhD, MBA
Speakers: Kate Gates, MSc; Bill Schmidt; Jamie Hillner; Rebecca Hall; Seth Klein; Dionn C. Tunis
• Your voice matters: Legislative advocacy and PFF Hill Day
• Starting a support group that works
• Getting involved! Participating in the PFF Walk and other events

3:30 p.m. - 5:00 p.m.

Session Chair: Renea Jablonski, MD
Speakers: Fred McLafferty, MD; Monsurat Okesanjo, RN; Ashley Johnson Whiting, CRNP; Mike Gordon
• Living with immunosuppression: Long-term effects and management
• What comes next? Understanding the realities and next steps
◊ Precautions, medication management (transplant coordinator)
◊ What do I do now for medical care?
◊ What do I do now in my every day life?

3:30 p.m. - 5:00 p.m.
See description on next page
Location: Chicago VI-VII
Session Chair: Bradford Bemiss, MD, MSCR
Speakers: Tadashi Allen, MD; Iazsmin Bauer Ventura, MD, MSc; Vijayalakshmi Ananthanarayanan, MBBS, MD; Yet Hong Khor, MBBS, FRACP, PhD
• Complex cases, collaborative minds: A study of interesting cases


We hope to see you in November of 2027 for the next PFF Summit in Bellevue, Washington! (Seattle area)























Ayodeji Adegunsoye, MD
Hyun Kim, MD
Karen Smoot
Heather Bachert, MSN, ANP BC
Brad Bemiss, MD
Zoe D. Bubany, MBA
Amy Case, MD
Anita Clos
Sonye Danoff, MD, PhD
Alison DeDent, MD
Laura Devitt
Jolene Fisher, MD
Kevin Flaherty, MD
Lori Flint, RN, BSN
Kate Gates
Dot Ivey
Heather Kagel
Yet Khor, PhD

Seth Klein
Aahd Kubbara, MD
Teja Kulkarni, MD
Jamie Lederer, MSN, CRNP
Joyce Lee, MD
Kathy Lindell, PhD, RN
Chad Newton, MD
Justin Oldham, MD
Janell Reichuber, APRN
Julie Rossignol
Mary Beth Scholand, MD
Jessica Shore, PhD, RN
Rebecca Smith, AAS RCPRRT,RPFT, AE-C
Matt Taylor, DO
Iaszmin Ventura, MD

