MOEBIUS SYNDROME FOUNDATION NEWS
Moebius Syndrome Foundation - The Home for the Moebius CommunityTM Fall 2019
In the Beginning. . . 25 Years of the Moebius Syndrome Foundation By Vicki Mc Carrell MSF board with Francis Collins, MD, PhD, Director of the NIH in Philadelphia 2012.
It is said that ‘Coincidences are God’s way of being anonymous.’ That seemed to be the case when Lori Thomas and I found each other in 1991. Our kids both had Moebius syndrome, and at the same time we both started searching for one other person in the world who had the rare neurological condition that left Chelsey and Sean without a smile. It was through our letters to Forward Face in New York that we were connected and realized that we lived only 4 miles from each other in Los Angeles. Thus it began, the get-togethers, the newsletters, Chelsey’s groundbreaking smile surgery, meeting Rich and Cathy Campbell from New York at the first Moebius Syndrome Conference in Los
Researchers defining Moebius syndrome in 2007
“On page 4 you will find are some of the highlights of this wonderful Foundation! What’s Inside
Letters from the President & Executive Director Conference and Mini-Conference Updates Moebius Syndrome Awareness Day Recap Employment: Tips for Great Job Interviews Thank You
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Angeles in 1994. . . On page 4 you will find are some of the highlights of this wonderful Foundation whose mission remains the same as the day it began: ‘To provide information and support to individuals with Moebius syndrome and their families, promote greater awareness and understanding of Moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of Moebius syndrome and its associated conditions.’ Thank you for joining us on this journey. . .
Moebius Syndrome Foundation News Fall 2019
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