Enable July / August 2023

An artisan picnic SUMMER OF MOVEMENT hamper for two Trying new activities and getting outdoors The UK’s leading disability and lifestyle magazine

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ACCESSING SOCIAL PRESCRIBING Connecting communities to tackle isolation

July / August

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CALLING FOR SCHIZOPHRENIA RESEARCH Changing attitudes and advancing treatments

TOMMY JESSOP A Life Worth Living

The new memoir exploring acting, activism and the need for understanding

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20/02/2023 11:41

Welcome

Get ready to enjoy another exciting issue of Enable Magazine

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COVER PRICE £3.00

PUBLISHER Denise Connelly denise@dcpublishing.co.uk EDITOR Emma Storr emma.storr@dcpublishing.co.uk EDITORIAL CONTRIBUTORS Jane Hatton Tim Rushby-Smith Alisdair Suttie DESIGN AND PRODUCTION Lucy Baillie lucy.baillie@dcpublishing.co.uk

he summer is officially here and with it comes the chance to get outdoors and try new things. This issue is packed with inspiration to get you going: we’re discussing everything from ways to get active, to how to get festival ready. We’ve even included a simple but delicious recipe for you to try. If you’re looking for something to read while you relax, I recommend my favourite book of the summer: actor Tommy Jessop’s new memoir, A Life Worth Living. Ahead of the book’s release, I had the chance to catch up with Tommy, who is also this issue’s cover star, to talk about why you should pick up a copy.

While the summer can be exciting, the cost of living, cuts to social care and the need for equity remain key concerns. That’s why we’ve packed this issue with information, advice and support on accessing social prescribing, money updates, the need for more specialist dementia nurses, alongside spotlighting exciting projects, organisations and more.

I hope you enjoy the coming months and that this issue is a helpful resource. What would you like to see in future issues of Enable? Let me know at the email below, and until then, enjoy the July/August issue!

SALES Marian Mathieson marian.mathieson@dcpublishing.co.uk ENABLE MAGAZINE www.enablemagazine.co.uk

DC Publishing Ltd, 198 Bath Street, Glasgow, G2 4HG Tel: 0844 249 9007

WINNER VOTED CONSUMER PUBLICATION OF THE YEAR ©DC Publishing Ltd 2023. All rights reserved. No part of this publication may be reproduced or used in any way without prior written permission from the publisher. The views expressed in this magazine are not necessarily those of DC Publishing Ltd. The publisher takes no responsibility for claims made by advertisers within the publication.

Every effort has been made to ensure that information is accurate; while dates and prices are correct at time of going to print, DC Publishing Ltd takes no responsibility for omissions and errors.

Get in touch

@enablemagazine Emma Storr | Editor editor@dcpublishing.co.uk

EDITOR’S PICKS...

40 EXPLORE SUMMER DESTINATIONS Discover places to visit and claim your free National Trust Family Access Pass.

54 TACKLING COUNTY LINES Across the country, vulnerable young people are being exploited. An organisation offering support gives tips and advice for parents on spotting the signs.

WIN

An artisan picnic hamper for two on page 34

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What’s inside

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31

46

Interview

8 A LIFE WORTH LIVING Cover Actor Tommy Jessop story takes us behind the scenes of his new memoir.

Care

10 GIVING POWER TO PATIENT FAMILIES The new legislation giving loved ones visiting rights in hospitals and care homes.

13 ACCESSING SOCIAL PRESCRIBING How can the practice help tackle isolation and connect communities?

Cover story

16 CREATING QUALITY END OF LIFE CARE Exploring the Dying Well at Home report from The King’s Fund.

18 SPOTLIGHT ON SPECIALIST DEMENTIA SUPPORT Admiral nurses can provide a lifeline for families, but more are needed to meet demand.

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Health 23 LET’S TALK INCLUSIVE SEXUAL HEALTH SUPPORT We meet a sexual health advisor to discuss the need for accessible services.

31 CALLING FOR Cover SCHIZOPHRENIA story RESEARCH The need for investment and change in the lead up to National Schizophrenia Awareness Day.

Voices 26 SOMETHING CHRONIC Tim Rushby-Smith discusses conversations about chronic pain management.

Active 36 SUMMER OF MOVEMENT How can you get active this summer?

Cover story

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Life 21 OPENING DOORS FOR GUIDE DOGS The campaign calling for an end to access refusals.

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28 MODERNISING MOBILITY AIDS Finding products that combine independence and style.

38 GETTING FESTIVAL READY We help you get prepared in the lead up to attending a festival or big event.

40 EXPLORE SUMMER DESTINATIONS Discover National Trust sites and redeem your Free Family Access Pass.

42 RECIPE: MINI SPICED HALLOUMI WRAPS Mimi Harrison shares a recipe from her upcoming book, Beat the Budget.

49 THE DIARY Explore events taking place this summer.

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50 PRODUCT ROUNDUP Find products for kids, safety and mobility.

54 TACKLING COUNTY LINES A charitable organisation reveals tips on spotting child exploitation.

57 A GLOBAL IMPACT How the Zero Project is sharing information to remove barriers.

66 PROVIDING ESSENTIAL SUPPORT OVERSEAS The project using an innovative technique to provide essential equipment in Kenya.

Finance 52 MONEY UPDATES The latest finance news affecting the disability community.

Motoring 45 ON THE ROAD Where to go when learning to drive with a disability.

61 IDENTIFYING TRANSFERABLE SKILLS Jane Hatton shares advice in her latest column.

46 REVIEW: GWM ORA FUNKY CAT Alisdair Suttie test drives this small but comfy car.

62 THE NEED FOR INCLUSIVE WORKPLACES New research from Business Disability Forum reveals the true inclusivity of workplaces.

Employment

Education

59 EASE INTO WORK Could an apprenticeship be the right path for you?

WIN

AN ARTISAN PICNIC HAMPER ON PAGE 34

64 SKILLS FOR LIFE The initiatives helping young disabled people gain essential skills. enablemagazine.co.uk enablemagazine.co.uk

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enable news

News Free sight tests to be provided in SEN schools previous special school eye care services.

The service provides a one-stop-shop visit with sight testing, glasses dispensing, and a user-friendly report for parents and teachers.

Lisa Hopkins, chief executive at SeeAbility, says: “Thousands of children who would have no other way of getting sight tests and glasses will now get a service in their school, and many thousands more will not have to attend hospital eye clinic appointments. It is no exaggeration to say sight will be saved and lives will be transformed.”

CARE WAITING LISTS REMAIN TOO HIGH AS PROVIDERS STRUGGLE TO MEET DEMAND A NEW REPORT FROM the Association of Directors of Adult Social Services (ADASS) has highlighted concerns that social care services are unable to keep pace with needs. The ADASS Spring Survey 2023 shows that short-term funding boosts from the government have helped to reduce the number of people waiting for care, but demand remains too high. As a result of funding and workforce issues, councils said they are not confident they can offer the minimum social care support in their communities as required by law.

“These survey results indicate that although the short-term funding boosts from Government have helped reduce the number of people waiting for care and increased support for people at home, this is simply not

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enough,” highlights Professor Martin Green, chief executive of Care England.

“Local authorities have been set up to fail by government.

“Local authorities are operating on a shoestring and require significant investment from central government.

Without intervention, we face an uncertain future.”

Report finds people with a disability at higher risk of homelessness

RESEARCHERS AT THE UNIVERSITY of Bristol and University of Leicester have found a rise in the number of disabled people experiencing poverty, and in turn, being under threat of homelessness. Between 2018/19 and 2021/22, this risk increased by 73 per cent in England alone. The findings highlight the additional barriers disabled people can face in getting support and escaping homelessness, including unsuitable environments, and a shortage of accessible housing. The first report of its kind, Homelessness and Disability in the UK was commissioned by the Centre for Homelessness Impact and used government data. The research also found that 82 per cent of people experiencing homelessness in England have received a mental health diagnosis, with the Centre now calling for consistent levels of provision, and improvements to the support currently on offer.

PIC: © SEEABILITY

THE UK GOVERNMENT HAS announced that from the 2024/25 academic year, all pupils in special educational needs schools will be offered NHS sight tests. The rollout aims to save more children’s sight, with research previously concluding that children with learning disabilities are 28 times more likely to have a sight problem than other children. This amounts to half of the special school population.

The NHS England Special Schools Eye Care service was originally set up in 2021 after work by charity SeeAbility that showed high levels of unmet need from

TOMMY JESSOP A Life Worth Living Tommy Jessop’s CV is packed with roles on TV, in film, and on stage, but now he is taking the public behind the scenes of these experiences in his new memoir

M

ost people know Tommy Jessop from his role as Terry Boyle in police drama Line of Duty, but the actor has so much more to offer than what you see on screen. He was the first professional actor with Down’s syndrome to star in a prime-time BBC drama and is an ambassador for Mencap and the National Down Syndrome Policy Group where he campaigned for the Down Syndrome Bill. He is also a co-founder of the Blue Apple theatre, is a patron of the Portsmouth Down Syndrome Association, and now, Tommy is officially a published author.

TELLING STORIES

Released on 6 July, A Life Worth Living is Tommy’s letter to the public, highlighting what the lives of people with Down’s syndrome are really like, exemplified by his own experiences as an actor, activist, son and friend.

“After I was in Line of Duty and started to campaign for the Down Syndrome Bill, a ghost writer asked if he could help me write a book about my life,” remembers Tommy. “I decided ‘no thank you’, I will start to write a book myself. My agent, Kate, put me in touch with Alex at Headline books.

We met on Zoom and I told him about my life and my career, then I wrote a

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summary and sent that to him, and he offered to publish my book.

“It has all been quite enjoyable, and intriguing finding out how a book gets made.”

For the first half of this year, Tommy has dedicated any free time he could to writing.

“It has taken about six months [of] enjoyable hard work writing every day straight after breakfast when I’m not filming,” reveals Tommy. “I start early because it is quite tiring, but good fun looking at all the wicked things that have happened and telling stories that might make people laugh.

“I think the book was partly inspired by my campaigning, but the other part was being inspired by other writers because I enjoy reading autobiographies and seeing what might have inspired them in their lives.”

The memoir takes readers on a journey through Tommy’s life, exploring ups and downs, and giving a clear view of the positive way he sees the world despite any adversity he has faced. Everything from his childhood, the decision to be an actor and his first roles on TV, to being selected by BAFTA Elevate, his passion for dancing and presenting a BBC Panorama investigation on NHS care for people with a learning disability are covered.

It is an important read that will see readers laugh, smile and even cry.

“I really enjoyed writing the sports section and thinking about the happy times in the plays, TV and films I’ve been in, but all of it really,” recalls Tommy. “Writing about hate crime and mate crime was difficult because I can really feel what people have been going through and I feel their pain.”

Peppered throughout the book, readers can find paragraphs written

by Tommy’s mum, Jane, exploring her view of different experiences. Her pride for her son and his achievements is clear, and this is something Tommy

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interview was keen to include in the book.

“I find that enjoyable and quite intriguing reading what she has to say,” admits Tommy. “I do enjoy being in her good company and having a laugh as well with her.”

His passion for facts and research shines through, with boxes of information on different topics dotted throughout the pages.

Tommy’s positive and cheeky personality is prominent on every page, and makes the book’s key message clear.

“People don’t really understand what the lives of people with Down’s syndrome are really like and they should learn about our lives and believe in us,” emphasises Tommy.

“The clue is in the title – that life with Down’s syndrome can be exciting and is worth living. I want to inspire people to follow their own dreams in life.”

Tommy doesn’t want to saturate the market: he wants his memoir to sit amongst more books written by people living with Down’s syndrome and other disabilities.

“I don’t feel I have a disability,” explains Tommy. “I’m just Tommy: brother, son, friend, actor, dancer, writer, activist, who loves life and living life. I want to show that people with Down’s syndrome are not all the same.

We are all different with different gifts and skills.”

“Everyone has a gift. They might just need a bit of help to dig them out,” adds Tommy. “We have hopes and dreams and feelings like anyone else. We have opinions and we care about life, family, friends, health, food, romance, jobs, politics, peace-making, climate change, sport and having fun.”

ENGAGING

After months of hard work, Tommy is ready for people to go behind the scenes of his career and personal life, and some familiar faces are already raving about the new release.

“I am really looking forward to people reading it. Some people like Stephen Fry and Mark Haddon read early copies and said kind things about my book,” enthuses Tommy.

On reading the book, Stephen Fry called Tommy: “The most instantly lovable and engaging personality to emerge from the pages of a book that I have encountered in decades.”

This isn’t just a book for people with Down’s syndrome and their loved

PICS: ©PAL HANSEN

LEARNING

ones, it is an opportunity for everyone to learn and change their attitudes.

“I would encourage you to read the book to be more positive about life and the world,” advises Tommy. “You might laugh and cry and find that I might be teasing you as well. I want as many people as possible to read the book and understand more about us.”

As he celebrates the book’s release, Tommy isn’t taking a break: he is currently working on a documentary for the BBC with his brother, Will, an award-winning documentary filmmaker. The new project, Tommy Goes to Hollywood, will follow Tommy as he sets out to create and pitch a superhero movie in the world’s movie capital. As for his other projects, he’s not letting anything slip yet.

“That might have to be top secret,” admits Tommy. “‘No comment’, to borrow a line from Terry Boyle in Line of Duty.”

Until his top secret work is revealed, Tommy has one message for Enable readers, he says: “Follow your dreams, live your life to the full, enjoy things as they come along and be kind.”

Follow your dreams, live your life to the full, enjoy things as they come along and be kind

FOR MORE INFORMATION A Life Worth Living by Tommy Jessop is published in hardback, ebook and audio download on 6 July (Wildfire, £20).

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Giving power to patient families New legislation will see families given the legal right to visit their loved ones in hospitals and care homes, and to attend appointments

V

isits from loved ones can be essential to the health and wellbeing of people receiving care, whether they are in hospitals, hospices or care homes. This support can be practical or emotional, but it is essential in providing high-quality care. Visiting restrictions have long been a problem in these settings, but their true impact was brought to light during the COVID-19 pandemic and its subsequent lockdowns. This time served as an example for the government, showing how essential visits can be to patients’ health, and now, new legislation is set to protect these in law.

LEGISLATION

The new legislation, introduced by the Department of Health and Social Care, will make visiting a legal requirement for hospital, care homes, mental health units and other health and care settings, and will apply in all circumstances.

The current guidance differs depending on the setting, but overall suggests that health and care settings should be allowing visits.

Despite this, there are reported cases where access is being unfairly denied.

The new laws will help to strengthen the rules and regulations around visiting, protecting families’ rights and patients’ wellbeing. Importantly, this legislation will extend to protect family members who wish to accompany a loved one to hospital appointments.

“I know how important visiting is for someone in hospital or living in a care home, and for their families. I know from my own experience too - I know what it feels like to be told you

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can’t see your Mum in hospital,” shares Helen Whately, the minister for care.

“That’s why I’m so determined to make sure we change the law on visiting.”

VIEWS

As part of the proposed changes, the government is seeking people’s views and experiences to help shape the new legislation. A consultation is now open, with loved ones and patients encouraged to share their stories to influence the law moving forward.

This can be completed on the UK Government website with an easy read version expected in the coming weeks.

“I have listened to campaigners who have been so courageous in telling their stories,” adds Helen. “I encourage everyone who cares about visiting to take this opportunity to have your say on our plans to legislate for visiting.”

POWERS

Once the consultation is completed, the feedback will be reviewed before the legislation is brought into place. Current guidance will also be evaluated, considering regulations in both inpatient and outpatient settings, emergency departments and diagnostic services in hospitals.

It is expected that once this happens, regulatory body the Care Quality Commission (CQC) will have clearer guidance on what good practice looks like, and more powers to act when hospitals and care homes are not meeting the required standard.

FOR MORE INFORMATION Find out more about these changes and how to take part in the consultation at www.gov.uk

You could get £5,000 if your vehicle doesn't meet the ULEZ standards To help clear London's air, the Mayor of London, Sadiq Khan's, scrappage scheme is providing financial assistance to help take the most highly polluting vehicles off the road.

9 out of 10 cars seen driving in outer London on an average day already meet the ULEZ standards, so their drivers will not need to pay the charge. But, if yours doesn't and you're a London resident receiving certain low income or disability benefits, you could get £2,000 for scrapping a car or £5,000 for scrapping or retrofitting a wheelchair accessible vehicle.

From the end of July, Londoners in receipt of child benefit can also apply to the scheme too.

You can claim benefits whether you are in or out of work. This means that many people could be eligible for the scrappage scheme, including care workers if they claim benefits.

Whether you are a London resident or not, grace periods (temporary exemptions) from the ULEZ daily charge until 24 October 2027 are available for vehicles registered with a 'disabled' or 'disabled passenger vehicle' tax class, eligible wheelchair-accessible vehicles and people receiving certain disability benefits.

To find out more, search TfL scrappage scheme

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Accessing

SOCIAL PRESCRIBING Social prescribing can help people access care and services in their local community, but often, it is underutilised. From tackling isolation to connecting people with similar interests, the practice can be especially helpful for the disability community enablemagazine.co.uk

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I

n 2019, the National Academy for Social Prescribing (NASP) was formed. Around the same time, major changes to GP contracts were taking place: for the first time ever, these included social prescribing as part of primary care and surgeries were able to access funding to employ a link worker. This marked the first time that social prescribing was freely available as part of mainstream healthcare.

Despite the new requirements to include social prescribing, it is still a lesser-known form of support. With a new campaign, Social Prescribing and Me, NASP are helping to raise awareness, urging people to utilise this service.

“A lot of health problems are caused by what we call social determinants, that could be loneliness, your income level, social prescribing is about trying to recognise and address those factors,” highlights Charlotte Osborn-Forde, chief executive at NASP. Social prescribing is part of the medical system, but recognises that other factors can impact on your health. The practice can help a very wide-range of people in the community, whether they are struggling with feelings of loneliness, the cost of living, physical barriers in their community or anything that is preventing them from forming good quality relationships outside of the home.

“Social prescribing is hugely inclusive, and at the heart of the NHS guidance about it is this phrase called ‘what matters to me’, that’s about making sure social prescribing is personalised to each person’s needs,” explains Charlotte. “It could be as simple as transport or money to access activities, building confidence when meeting new people because that can be really frightening.

“It can connect you to things in the community that could address some of the reasons that your health is deteriorating.”

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IMPROVING ACCESS

A lot of health problems are caused by what we call social determinants, that could be loneliness HOLISTIC

Link workers are at the heart of social prescribing, responsible for learning about people’s needs and offering solutions in the local community.

“People who are digitally literate can look things up online and find what’s on offer, so link workers are really there for people that would struggle to do that,” offers Charlotte.

“Their role is to be supportive and inclusive, and to work around a person’s needs whether they are physical or communication needs.”

You can visit a link worker in your local GP surgery, but they are also able to do home visits to ensure everyone has access to this vital service.

“They talk to people very holistically about what’s important to them and also what the barriers are to accessing those things,” explains Charlotte. “The link worker will then look at all of the resources available in the community. It could be a local art group, helping someone go to the park with their grandchild, or even making sure they have all of the benefits they are entitled to so that they have a little bit more income.”

Often, link workers connect people with community transport schemes or local organisations, setting them up to form meaningful relationships.

This support doesn’t necessarily stop once a solution is offered: link workers are qualified to attend things like community groups with someone, helping them to take the first step or settle in to a new environment.

“Once that person has made friends or has settled in, the link worker will then go on to help the next person who needs it,” states Charlotte.

Despite a requirement to offer these services and the positive influence they can have in integrated health and care services, there is still a shortage of link workers, and where they do exist, they are often overrun.

“In an ideal world link workers could see everyone in person and go with them to groups in the community, but often they are under a lot of pressure because so many people need help,” stresses Charlotte. “It might be that they’re just providing information and support over the telephone.”

“We want to see more social prescribing, we want more people to access it and we want it to be of a really good quality so that where it does happen it’s really making a difference to people,” adds Charlotte. “The NHS does really value social prescribing and they’re looking at integrating it in other parts of healthcare, for example when you are being discharged from hospital you might be offered an opportunity to talk to a link worker about how you can settle back into your home.”

Currently, NASP is working to raise awareness of social prescribing and its importance to ensure steps like this are possible.

Accessing social prescribing could help prevent health issues in the future, and so if you could benefit, Charlotte would encourage you to reach out for support, she says: “We would encourage everybody to ask their GP practice, next time you’re in why not ask the receptionist or your doctor?

“There are lots of other services out there, so if you are digitally literate you can always have a look on your local council website, search for local charities and they will give you some information and a phone number you can call.”

FOR MORE INFORMATION Learn more about social prescribing and how it could help you from the National Academy for Social Prescribing (www.socialprescribingacademy.org.uk) and NHS England (england.nhs.uk).

INTELLIGENCE • EMPATHY • CARE

INTELLIGENCE • EMPATHY • CARE

Recognised Converter

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CREATING QUALITY END OF LIFE CARE O

ver the last few years, the number of people choosing to die at home has increased, and these numbers are projected to rise. The long-term trend reflects advancements in care, but it also raises the question of whether the right level of care exists to keep up with this increase.

As part of the Partnership for Responsive Policy Analysis and Research, a collaboration between the University of York and The King’s Fund, a report was created to inform the Department of Health and Social Care’s policy development in the area.

Alex Baylis, assistant director of policy at The King’s Fund, and Luca Tiratelli, a researcher at the charity, both worked on the report: Dying Well at Home.

PREPARED

“The numbers have been projected for 2040 and so we have an idea of what to expect almost 20 years ahead. We have to raise the questions of are we prepared? Do we have systems in place to make sure that people are getting the right quality of care?” asks Alex.

This level of care could include

things like providing a hospital bed in someone’s home, but at its heart, it requires doctors, nurses and care professionals to communicate effectively, ensuring everyone is able to access the highest quality of care at an extremely difficult time. The people with the power to ensure this happens are NHS commissioners, a group that were integral to creating the report.

“They have a system-wide view across different services and the ability to assure quality of care, and of course they are responsible for planning and assessment,” explains Alex.

INFORM

The team interviewed NHS commissioners in 10 areas of England, and social care commissioners in a further five areas, finding out how they assess need, plan services and assure quality of care for people who die at home. This comes during the development of integrated care systems and a new statutory duty for commissioning end-of-life care.

“We weren’t trying to find the best or worst experiences,” offers Luca. “We were trying to get a snapshot of what

Increasingly, people are choosing to die at home rather than in hospital and with this trend set to continue, a new report is examining the need to commission quality end-of-life care

was going on around the country.”

Drawing on these findings, and the experiences of people who are recently bereaved, the report makes recommendations for commissioners, integrated care boards, and national bodies to ensure this opportunity is utilised.

“We need to have a system-wide approach that can flex to meet people’s needs,” emphasises Alex. “The report’s main message is that there is an opportunity to engage with people, to understand what they want, what their needs are, and to ensure an integrated approach. People’s experiences are essential to detecting and addressing variations.”

PRIORITY

Every person’s needs are unique when considering end-of-life care, and so these voices are often more important than creating a standardised approach.

Now, commissioners and integrated care systems are tasked with ensuring collaborative and compassionate athome care is a priority moving forward.

“Governance is key to making sure it’s not just a person’s passion that keeps it going, but actually a system that is really clear about what we’re trying to achieve, and how they’re going to monitor the progress towards that,” stresses Alex.

End-of-life care at home is improving and will continue to advance with the new statutory duty, but while that happens, Alex and Luca would recommend that people reach out to their GP or district nurse to understand the support and services available in their area.

FOR MORE INFORMATION Read the full report from The King’s Fund online (www.kingsfund.org.uk) or access information about end-of-life support through Marie Curie (www.mariecurie.org.uk) and Hospice UK (www.hospiceuk.org).

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Accessing

SPECIALIST DEMENTIA SUPPORT

Across the country, admiral nurses are ready to offer expert advice and support to individuals and families affected by dementia

A

cross the UK, around 900,000 people live with dementia, affecting them and their families.

Providing a light during often dark times, admiral nurses are there to offer support and expertise, but the need for more of these specialists could mean many families are missing out on a lifeline.

Dr Hilda Hayo has over 39 years of experience developing and leading dementia specialist teams and services throughout the NHS. She is a dual registered nurse and is both the chief admiral nurse and chief executive at Dementia UK. Admiral nurses are supported and developed by the charity, helping families affected by all forms of dementia, including Alzheimer’s disease, to access support.

These nurses usually have many years of experience working with people living with dementia as well as their families

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IMPORTANCE

“Admiral nurses are specialist dementia nurses who have expertise in working with all stages of dementia and people of all ages, in all the different complexities that dementia can bring,” explains Hilda. “These nurses usually have many years of experience working with people living with dementia as well as their families.”

The nurses work either for Dementia UK, delivering expertise through a dedicated helpline or in clinics, or as consultant admiral nurses in the field. About 50 per cent of these are hosted by the NHS, helping when individuals and families need it most.

“The key thing that we do as admiral nurses is support that whole family unit,” explains Hilda. “It’s about supporting people as relationships change, through the transitions of going from hospital into long-term care, or coming out of hospital and going back home again.

“It could be as part of a care package at the end of life, or simply when people need specialist advice if things are a little bit more complex to deal with.”

Each admiral nurse is likely to be a specialist in a particular area: Hilda focusses on working with families where someone has received a young onset diagnosis under the age of 65.

“It could be coming to terms with

that diagnosis, facing the possibility that they have a genetic form of dementia which may well go on to the next generation,” offers Hilda.

SHORTAGE

Despite the need for admiral nurses, they are not fully funded by the NHS, and there is currently a shortage which is preventing all families affected by dementia from accessing this essential support.

“We have 435 admiral nurses at the moment across the UK, with about 25 more in development, but on average we can only look at about 10 per cent of cases of people living with dementia, and therefore we need more support through these specialist nurses,” reveals Hilda. “By 2025 a million people are likely to have dementia, and we need approximately 1,000 admiral nurses to meet the needs of people, so we’re about halfway there.

“It’s one of those things that keep you awake at night when you’re trying to work it out and strategise what to do. The need will keep building and building until we find a cure or a really effective preventative treatment for dementia.”

As in other areas of health and social care, funding is a key barrier to these numbers reaching the necessary amount.

“You can’t escape information about funding for the NHS, it’s in

enable care

Dr Hilda Hayo

REACHING OUT

While more admiral nurses are urgently needed to keep up with demand, Hilda

would still encourage families and individuals to continue reaching out for advice, whether their questions feel big or small.

“The helpline can be a first port of call for anybody that hasn’t got a local admiral nurse, or if they don’t know that they have then we’re able to give families a way to contact them,” stresses Hilda. “In other words, they could be able to contact them without going through the GP.” The helpline itself is manned by admiral nurses, so callers will receive accurate and trustworthy advice, regardless of where they are getting in touch from. The line also allows people to book clinic appointments for further support.

“You’re able to book a slot which generally lasts for about 45 minutes to an hour in our clinics, or that could be a video call or even a phone call,” explains Hilda.

This resource isn’t just for people in crisis or at the stage of diagnosis: you shouldn’t hesitate to get in touch with

queries big or small.

“Often, the first thing people say on the helpline is that they don’t want to disturb us or they know they are contacting us needlessly, but an hour later we have addressed so many issues that the person has been worried about,” reveals Hilda. “Whatever the issue is, please contact the helpline because we can give advice and support. No call is unnecessary, no one is wasting our time, this is what we’re here to do.”

If you or a family member are living with dementia, or you are looking for advice and support for a loved one, don’t hesitate to reach out: expert support is closer than you think.

PIC: ©DEMENTIA UK

every newspaper and on every news channel on a regular basis, but we have to factor in social care as well who are really being hit by funding cuts,” emphasises Hilda. “The NHS are focussed on waiting lists and primary care, but then that means they’re not always investing in community care for people who need that post-diagnostic support so that’s where the issues are.”

Most nurses work for about five to 10 years after they register before qualifying as an admiral nurse, and with data showing that almost 43,000 nursing staff aged 21 to 50 left the profession between 2018 and 2022, it is hard to see an end to these obstacles.

“We need to train twice as many nurses as we currently are because if we don’t have that pipeline of specialist nurses coming in, then we can’t supply this treatment for patients,” states Hilda.

FOR MORE INFORMATION If you could benefit from advice from an admiral nurse, call the dedicated helpline on 0800 888 6678, email helpline@dementiauk.org, or visit the Dementia UK website (www.dementiauk.org).

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and young people can take three times Did you know? Children longer to recover from a concussion than adults.

Most children and young people make a full recovery after a head injury, however, some experience longer-term difficulties.

That’s where our website can help.

Bumps Happen is an online resource for parents and carers. If your child has had a head injury, or you’d just like to know more, visit Bumps Happen for help and guidance.

bumps-happen.co.uk Charity registration number: 288018. TCT_1708. 06/23

Scan here

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Opening doors for

Guide dogs As guide dog owners across the country continue to experience access refusals, a charity is calling for legislative change

RIGHTS

In the UK, it is a criminal offence if taxi or private hire vehicle drivers refuse access for an assistance dog owner. Failure to comply with this can result in a fine of up to £1,000, and the driver’s licence can be suspended or fully revoked. In other circumstances, like entry to shops or restaurants, refusing an assistance dog can be considered a breach of the Equality Act 2010. While this Act isn’t specific to assistance dog refusals, it is often seen as discrimination arising from a disability, or failure to make a reasonable adjustment.

REFUSAL

The new research, which was conducted by YouGov on behalf of the charity, asked guide dog owners about their experiences, and other members of the public for their response to these results. Of the 242 guide dog owners surveyed as part of the research, more than 80 per cent reported having experienced an access refusal, with 73 per cent of those having occurred over the last 12 months.

In response to these findings, over a third of people agreed that the government is not doing enough to tackle the issue of access refusals experienced by guide dog and other assistance dog owners. Many of the people questioned said they were shocked, appalled and disgusted to learn that the majority of guide dog owners have experienced access refusals.

CHANGE

The public’s reaction to the research only highlights the need for change.

The research adds to Guide Dogs’ Open Doors campaign which has seen the launch of a free app, allowing guide dog users to easily and quickly report illegal access use. The campaign also includes a petition in support of stronger legislation, currently with

more than 53,000 signatures.

It is hoped that backed by the petition and this new data, the government will introduce an explicit requirement to admit an assistance dog in all settings, removing the need for owners to justify their dog’s presence or the need for a reasonable adjustment on every occasion.

PICS: © GUIDE DOGS

G

uide dogs provide a vital service to people who are blind or visually impaired, helping them to maintain independence and access everyday services. Despite being protected in law, guide dog owners are continually turned away from businesses and services.

New research from Guide Dogs has revealed that almost half of guide dog owners have changed or restricted their plans to visit certain places because of concerns over access refusals. These refusals are re-enforcing the barriers that having a guide dog should remove.

FOR MORE INFORMATION Discover more about the Open Doors campaign and what to do if you experience an access refusal on the Guide Dogs website (www.guidedogs.org.uk).

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21

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*Model shown is Aygo X Pure (MY22) 1.0 VVT-I Auto at £0 Advance Payment. Subject to availability. Available as part of the Motability Contract Hire Scheme. Please note that a total of 60,000 miles over three years are allowed on the Motability Contract Hire Scheme. Offer valid between 1st April 2023 and 30th June 2023. Motability Scheme vehicles are leased to customers by Motability Operations Limited (Registered Company No.1373876), City Gate House, 22 Southwark Bridge Road, London, SE1 9HB. To qualify you must be in receipt of the Higher Rate Mobility Component of Disability Living Allowance (DLA), the Enhanced Rate Mobility Component of Personal Independence Payment (PIP), the War Pensioners’ Mobility Supplement (WPMS) or the Armed Forces Independence Payment (AFIP) and applications must be made with participating dealers between 1st April 2023 and 30th June 2023. Prices are correct at time of print, are subject to availability and may change. Official fuel consumption figures in mpg (1/100km): combined 54.7 (5.2) to 56.5 (5.0). Combined CO2 113 - 117 g/km. Figures are provided for comparative purposes; only compare fuel consumption and CO2 figures with other cars tested to the same technical procedures. These figures may not reflect real life driving results. All models and grades are certified according to the World Harmonised Light Vehicle Test Procedure (WLTP), which replaces the New European Driving Cycle test procedure (NEDC). All CO2 figures quoted are NEDC equivalent. All mpg figures quoted are WLTP figures. Please visit www.vehicle-certification-agency.gov.uk/fb/wltp.asp or contact your local Toyota Centre for more information.

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enable health

LET’S TALK

Inclusive sexual health support Everyone should have access to inclusive information on sex and relationships: it is essential to health and wellbeing, and when it isn’t available, this can lead to misinformation and dangerous situations enablemagazine.co.uk

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espite the importance of inclusive and accessible sexual health resources, many people with a learning disability are still excluded from conversations about sexual health and their bodies.

There’s a missing piece in the fight for information: inclusive and accessible sexual health services.

Charities and organisations like Mencap, Choice Support, Brook and more are sharing accessible resources and campaigning for change in education and medical settings, and adapting current services doesn’t have to mean a complete overhaul of provision.

NHS trusts around the country are implementing essential training, but some are taking this a step further and forming specialist services to better support people with a learning disability.

In Chelsea and Westminster, the Pearl Service is providing sexual health screening and advice for people with learning disabilities, and has been doing so through this dedicated system since 2006.

ACCESS

Ceri Evans, senior sexual health advisor, led the development of the service alongside her colleagues from the learning disability team at NHS Hammersmith and people with a learning disability after an incident made them reassess how they were reaching out to this group.

“We have always been keen on working with groups of people that traditionally found accessing healthcare quite difficult, so we were already running a lot of services for young people,” remembers Ceri. “Back in 2006 our clinic was running and somebody came to reception. They were a worker from the local learning disability team and brought in a female who had been sexually assaulted.

“They didn’t know where to bring their clients in that situation or exactly what services were available, and in talking we realised that we had to get together and make it easier for people with a learning disability to access our services.”

Ceri and her colleagues knew they had to reach out to this group of people and ensure they had somewhere to turn for accessible, inclusive and confidential sexual

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If sexual health isn’t talked about in a positive and open manner, then we know that they will turn to the internet or friends for information health care. The Pearl Service was formed, offering a dedicated, easy access sexual health service for people with a learning disability, providing screening for sexually transmitted infections, offering advice on safer sex, and running contraception services including giving out free condoms.

BARRIERS

Despite centres like this providing essential information and services, and a wealth of accessible resources being available online, there is still a need for change when it comes to sex education, discussions around sexual health and disabilities.

“Disabled people can find it difficult to contact different health services, to make appointments, and the system relies on people being able to do that,” highlights Ceri. “Initially we focussed on easy access, making it easier for people to contact our service. We created a direct line to our sexual health advisors and then would facilitate them coming in by making sure they have double appointments, assessing their needs, making sure nothing is rushed or pressured.”

The barriers to inclusive services and education aren’t just practical, but also societal.

“There is still an issue in people thinking that people with learning disabilities shouldn’t be having sex, we need to normalise the fact that everybody is entitled to a good, healthy and safe sex life,” states Ceri.

“We often hear people say that by running a dedicated clinic we are encouraging them to have sex, but that’s not true: people will have sex

regardless, it’s our jobs to make sure they do it safely and enjoyably.”

A necessary change in attitudes should start in education settings, somewhere that equal provision is often lacking.

“Sometimes it’s a topic that just isn’t covered for people with a learning disability whether that’s in school or at home,” explains Ceri.

“People don’t want to talk about it or they gloss over it, but if sexual health isn’t talked about in a positive and open manner, then we know that they will turn to the internet or friends for information which can be dangerous.

“We know that for parents and carers, talking to your child about sex can be uncomfortable and make you feel stressed, but we know that this is the best way to protect them.”

Resources like easy-read information and picture books can be helpful at home and in education settings, or visiting a specialist clinic like this one where a trained professional can help. When attending an appointment like this, the young person will speak to a practitioner alone first to ensure there are no safeguarding issues, then if they choose, a parent, carer, key worker or friend can come into the appointment to support them.

“People will see a sexual health advisor who will ask them about their history, what they might want to know and any concerns they have,” offers Ceri.

Over time, the Pearl Service team have learned that creating an inclusive clinic can mean making simple but meaningful changes, and being considerate of each individual’s unique needs.

“We know we have to be clear with our language, to never assume that we know how to best communicate with people, to be quite literal when we explain things,” highlights Ceri. “A lot of the ways we work with people with learning disabilities is the same way we work with anyone else who comes into the clinic: we’re doing the same things, sometimes we just have to be more flexible to make sure people feel understood.”

FOR MORE INFORMATION Find inclusive information on sexual health from Mencap (www.mencap.org.uk) and Choice Support (www.choicesupport.org.uk). If you live locally, you can contact the Pearl Service by calling 020 3315 9779 or find out more online (chelwest.nhs.uk).

enable voices

Tim Rushby-Smith Originally from London, writer, artist and paraplegic Tim Rushby-Smith is now based in Australia. He is the author of two books: Looking Up and Beyond the Break.

Follow Tim on twitter @trushbys

SOMETHING CHRONIC M

any mainstream cultural attitudes around disability are still based on a medical perspective which indicates there is something wrong with us. This doesn’t mean that people don’t care.

Often, it starts with a well-intentioned desire to ‘help’.

APPROACH

This may be in part because we are wired to project ourselves into the experience of others, which is often seen as one of the defining strengths of our species. But it’s not all that’s going on: while this is one of our most human traits, we are also conditioned to think that medicine as a discipline operates in a similar way to engineering. We might even talk about our ‘plumbing’

We are wired to project ourselves into the experience of others

26 enablemagazine.co.uk

or say of others that they are ‘wired differently’.

In many ways, this approach is really important. It allows surgeons to approach their work with the dispassionate discipline required to perform incredibly complex procedures, for example. It has also led to innovation in adaptive technology that works because it cleverly navigates the borders between human and machine.

But engineering demands solutions to problems, and some things can’t be fixed. In some cases, they don’t need fixing.

We are moving towards greater understanding of neurodiversity, with ‘retro-diagnoses’ of historical figures highlighting how such diversity has been a vital part of society for as long as, well, society has existed.

REACT

Chronic conditions, on the other hand, are altogether more difficult, culturallyspeaking. Our desire to fix, to help, to alleviate, meets an intractable issue, and many of us don’t really know how to react.

In my case, I live with chronic pain caused by neurological damage I

Tim explores the ways society approaches chronic conditions, and how he has taught the people around him to react

suffered when I had my spinal cord injury 18 years ago. In all of that time, I have never had more than 40 minutes of consciousness without feeling burning, stabbing or electrical shocks in my legs. Some days it will be constant.

I have tried many, many things.

Some combinations adopted have had success in easing the pain to the extent that I am able to work, cook, generally care for my family, etc. Other times, I need to just blot it out, either through distraction or medication, playing video games while I wait to lose consciousness (video games are strangely effective, I think it’s the mental emersion).

One of the most important things that helps is the way I have trained those around me to behave. It has been a tough learning process for them, and the fact that they have had to develop such a skill saddens me greatly. But there it is.

The skill in question? Ignore it. Turn down the empathy. Just give me a minute, it’ll pass. Or sorry folks, but I need to check out for a few hours.

Despite being an attention seeker, there are times when I need to fade into the background.

Ian Botham has made his second miraculous comeback since Headingley 1981, and it’s all thanks to this Sports Gel. July 2022, when Ian Botham was at his least mobile, his son Liam sent him a tube of EthicaCBD Sports Gel.

“

3 weeks later he was walking around Sunningdale” - Liam Botham, Ex Professional Sportsman

“

Within 3 weeks of using the soothing gel, Ian was back walking around Sunningdale golf course and in September 2022 he returned to

competitive golfing, playing 3 rounds at the Dunhill Links. Prior to receiving the Gel, Sir Ian had not walked a course for over 2 years.

This magical stuff should be called a Mobility Gel, rather than a Sports Gel.” - Sean Jack, Owner Of HPT Sports (Bude)

EthicaCBD is a Cornish brand, based in the seaside town, Bude. Chatting with Sean Jack at HPT Sports in Bude, he thought the product should be called something else other than a ‘Sports Gel’, because it’s helping a wide variety of customers with their aches and pains - not just sporty types.

Chiropractors and physiotherapists are also finding that this gel reduces pain and improves mobility. This is what Dr Maryellen Stephens of Spinal Health had to say:

“The EthicaCBD sport gel is my new favourite natural anti-inflammatory that encourages the body’s own

healing abilities. I use it in practice and at home. I am always amazed at how quickly it can ease pain and swelling in a joint, or create ease in very sore muscles. I have shared it widely with other practitioners who have experienced similar results.

I highly recommend!”

This natural formula is quickly becoming a staple in the lives of many people looking to improve their quality of life. It’s so much more than a ‘sports gel’, and as Ian quite rightly says,

“

People should use it. If they need it, use it.” - Lord Ian Bothan

After all, aches and pains certainly don’t discriminate.

“

Let’s get the world moving again.

It’s only natural.” - Ruarri Spurgeon, Director of EthicaCBD

EthicaCBD spent 2 years developing this complex formula, hoping to find the perfect way to combine CBD & CBG with loads of naturally therapeutic botanicals. Based on the response they’re having from people of all walks of life, it looks like they might’ve found that perfect recipe.

“

Sometimes you can do all the talking in the world, but when it comes down to it, it’s gotta work… and this really works” - Lord Ian Botham

ETHICACBD.COM

enable life

MODERNISING

MOBILITY AIDS

If you are looking for a new mobility aid, you shouldn’t have to compromise on style.

We discover how mobility aids are changing, and where you can find colourful and practical options to fit your personal style Neo-Walk

byACRE

Cool Crutches

Zeal

T

ypically perceived as something used by the elderly, mobility aids can come with feelings of internalised ableism and different stigmas, despite their necessity for so many people.

Ranging from compression socks through to rollators and products in the home like stair lifts, there is an immense range of mobility aids on the market, and regardless of your age or abilities, you shouldn’t have to compromise substance for style. Often vital tools for independence, more mobility aids are coming to the market that combine practicality with a more modern appearance.

INSPIRATION

When considering what you need from a new mobility aid, aesthetics can be a factor, but you should also ensure that they are appropriate for your needs and budget. If you are looking for a rollator or a similar aid, think about whether this

28 enablemagazine.co.uk

needs to be lightweight, if you need this to have a seat for short rests, and whether it will easily fit in your car if you use one. If you have a mobility aid provided through the NHS, it can be hard to make this feel personalised: adding a colourful cushion, ribbons, or easy peel stickers are all great ways to adapt your mobility aid.

You’re not alone in your search for a stylish mobility aid, if you’re looking for inspiration, want to see how people are using more modern mobility aids, or you are trying to build confidence in using a new mobility aid, look through #BabesWithMobilityAids on Instagram.

The hashtag has more than 24,000 posts, all with people embracing their mobility aids. This is a great way to discover new products and how they could help you.

You could also use this as a platform to learn about user experiences, or to reach out to other people who have similar needs and ask how they find different products and if they would recommend them or not.

DISABILITY-LED

As more people embrace their mobility aids, products are moving away from the grey to double as a bright accessory: compression socks from Not Your Grandma’s (www.notyourgrandmas. co.uk); walking sticks from Glamsticks (www.glamsticks.co.uk) and Neo-Walk (www.neo-walk.com); crutches from Cool Crutches (www.coolcrutches.com); and rollators from Rollz UK (www.rollzmobility. co.uk), byACRE (www.byacre.com), and new company Zeal (www.zeal-lifestyle. com).

Look out for aids that are created by disability-led businesses, these are often made with more input from disabled people on every aspect of the design.

FOR MORE INFORMATION Looking for advice on embracing your mobility aids?

Follow influencers like Nina Tame (@nina_tame), Lucy Dawson (@luuudaw) and Georgina Wasdall (@georginawasdall).

MAKING A

LIFE-CHANGING DIFFERENCE...

“I wear DMO® Custom socks, leggings, vest and a glove almost every day,” says Charlotte, 17, who has Ehlers Danlos Syndrome (EDS). “This compression clothing allows me to do so much more with my life. Not only does it provide support, it helps reduce my fatigue and improves my POTS (Postural Orthostatic Tachycardia Syndrome).”

Hundreds of patients with a range of medical conditions are, like Charlotte, benefiting from the expertise of the DM Orthotics clinical team. Located throughout the UK, ten clinicians, five orthotists, and five physiotherapists have more than 250 years of combined experience and an impressive mix of skills.

“Orthoses can make the difference between being able to walk or not, and being able to lift a cup without spilling its contents,” said Patricia McCotter, UK Clinical Manager and UK Clinical Specialist Orthotist.

L-R: Merlin Young, Caroline Jackson, Patricia McCotter, Lynsey McCallum, Martin Matthews, Sarah O’Leary, Holly Nicholson, Pam Cowans, Helen Brind and Emma De Campos.

Patricia and her team are always striving to improve patient care by introducing new products or modifying existing ones to achieve better outcomes. Adults and children with autism, ADHD, sensory processing disorders, stroke, cerebral palsy, Duchenne Muscular Dystrophy, EDS, hip dysplasia, MS, Scoliosis, Spina Bifida, Spinal Muscular Atrophy and a range of neuromuscular disorders are among the many people to have benefited from their work.

After being introduced to DM Orthotics in Leeds, Charlotte hasn’t looked back. “Combining my orthotics with physio has allowed me to start to run, which is something I never thought I’d get to do again. Thank you, DM Orthotics. You have helped give me a better life.”

SCAN HERE OR VISIT www.dmorthotics.com to see our products, customer testimonials and more...

“Basically, our orthotists and physiotherapists are problem solvers who assess each patient, discuss their issues and concerns, then use their professional skill and experience to find a way forward.”

Patricia McCotter

For more information, visit www.dmorthotics.com

enable health

CALLING FOR

Schizophrenia research Around the world, schizophrenia is still widely misunderstood, leading to a lack of research, appropriate treatment, and often, discrimination. For the 24 million people who live with the condition worldwide, a change in attitudes and approach is essential enablemagazine.co.uk

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nlike some other conditions, perceptions of schizophrenia are changing very slowly, and around the UK, organisations are working as advocates for this community, demanding more support, understanding and research.

Marjorie Wallace is the chief executive and founder of SANE, a mental health charity originally created in 1986 in response to the neglect of individuals and families affected by schizophrenia and other mental health conditions. The charity aims to raise awareness, offer support, and further research.

“It is as challenging as a physical illness but the research, treatments and therapies aren’t always there,” highlights Marjorie. “These interventions could alleviate some of the anguish and pain experienced by people with schizophrenia, but the brain is something we still know very little about.”

In response to a general lack of understanding and support, SANE set up the first national helpline giving information and guidance as well as emotional support. This is still available today, 365 days a year.

“We have a crisis line open in the evening where people can speak with trained volunteers or professionals to help them through dark times,” highlights Marjorie. “We have a database of information so that we can help people who call from anywhere in the country.”

RESEARCH

Each year on 25 July, National Schizophrenia Awareness Day helps put the spotlight on resources like this, but importantly, highlights the challenges faced by people living with the condition and what has to change. At the heart of this change is the need for more research.

“We haven’t had any breakthroughs in the way that other conditions have, especially with medications,” explains Marjorie. “People still have to rely on things such as antipsychotics.

“There are quite a lot of therapies like committed behavioural therapy for people with schizophrenia, but it hasn’t been proven that this is an effective treatment because there’s

32 enablemagazine.co.uk

It’s a failure that we are still treating people like it is the dark ages no evidence yet.”

Currently, SANE are researching effective interventions and treatments, including the effectiveness of CBD oil in treating people who live with schizophrenia at different stages. The organisation’s facility, The Prince of Wales International Centre for SANE Research, will be the hub for this study, connecting with 35 centres around the world.

“We believe that there should be a huge focus on research: we need to see more pharmaceutical companies take interest, we need better education, because we know that the right medication is really key,” states Marjorie.

Without essential research, currently outdated treatments won’t improve, often leaving people living with schizophrenia and their families with nowhere to turn.

“We need a revolution in how people are treated, people who deteriorate to the point of a psychotic breakdown or become suicidal can’t access help and their families live in fear that they turn up to the hospital and there are no available beds for them,” reveals Marjorie. “I believe this is one of the most distressing conditions known to mankind, and it’s a failure that we are still treating people like it is the dark ages.”

INCLUDED

Having a dedicated day to highlight these issues is important, but the fight for more support and better treatments is ongoing throughout the year. Alongside research, there has to be a better understanding of how to help people with schizophrenia in the medical community, and a more effective system to support people in a crisis.

“People in this community can call

our helpline or contact someone for emotional support, but from time to time they need to access a safe hospital setting where they can see specialist psychiatrists and trained psychiatric nurses, and right now that element simply isn’t there,” expresses Marjorie. “Support has dwindled while demand has escalated, and we now have very few places where people can get help long-term.”

This has resulted in pressure not only on families, but on the health and social care workforce: a community that is already under extreme stress due to the number of people leaving these careers and a lack of funding to offer appropriate pay.

“We need to dramatically recruit and retain the workforce,” states Marjorie. “Families are getting angry that they can’t get answers, they feel shut out of the circle of information and when they express concerns, they are sometimes ignored.

“We’re dealing with a mental health crisis in many areas, and that means that when someone needs crisis support, they could be driven hundreds of miles away to the first available bed where they don’t know the doctors and their family can’t visit them easily.”

SANE and other support organisations in the UK have continually campaigned for better support, but there also has to be a cultural change to reduce the stigma around the condition.

“We need to give this the same urgency as a physical condition, but we also need to get the message across that there has to be a change in attitudes, people shouldn’t be excluded,” highlights Marjorie. “We need to get the message across that schizophrenia isn’t some sort of failure, these are people who deserve to be treated as equal in society.”

FOR MORE INFORMATION Learn more about the need for research and how you can get involved in National Schizphrenia Awareness Day from SANE (www.sane.org.uk, 0300 304 7000), and Rethink Mental Illness (www.rethink.org).

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#DuchenneCAN

Inspiring man living with a rare disease is taking action to save the planet #DuchenneCAN is a global movement celebrating what individuals affected by Duchenne Muscular Dystrophy (DMD or Duchenne), CAN achieve. Despite living with a life-altering rare disease, each one of the #DuchenneCAN stories highlights the incredible resilience and strength faced by the community.

A

n inspirational man who is living with the rare, fatal disease Duchenne Muscular Dystrophy (DMD) is dedicating his life to protecting our planet.

Benni Over, aged 32 living in Germany, was diagnosed with DMD in early childhood and has been a wheelchair user since the age of 10. DMD causes muscles to weaken and leads to an increased level of disability, breathing difficulties and cardiac problems.1,2 In spite of the daily challenges Benni faces, he’s travelled across continents, launched impressive fundraising campaigns, and has even written two books – all in a bid to combat climate change and preserve our planet.

Benni’s love of conservation was first sparked after a visit to Berlin Zoo in Germany.

Following this visit, Benni developed a strong bond with orangutans, which are a particularly endangered species. His passion to protect these animals drove – or rather flew - him all the way to Borneo, an island in Southeast Asia that is nearly 7,000 miles away from his hometown. While there, Benni worked with a specialist orangutan camp and developed a friendship with renowned

conservationist and animal rights activist Willie Smits. This visit left a huge impact on Benni, and once back in his native Germany, he fundraised over €90,000 for the camp.

Benni’s visit to Borneo also motivated him to write a children’s book, “Henry Saves the Rainforest”, which is a heart-warming story based on the impact of deforestation on species which are native to the rainforest. After the success of his first story, Benni is also busy writing his second book, “Henry with the Polar Bears”.

Benni’s efforts to protect our planet led to him being named an official ambassador for orangutans, and he has received a prestigious Order of Merit from the ministry of RhinelandPalatinate in recognition of his work.

Benni’s dedication to the environment has continued to prove that people with Duchenne CAN achieve amazing things, despite the challenges they face with their condition. As Benni says, “Everybody CAN help to build a better future. We only have this planet. So, let’s save it.”

Everybody CAN help to build a better future.

We only have this planet. So, let’s save it.

FOR MORE INFORMATION Head to www.DuchenneCAN.co.uk to read more inspirational stories, from geneticists, to Amazon-bestselling authors and award-winning caregivers.

This Article is developed and sponsored by PTC Therapeutics Code: ATA/DMD/UK/23/2023 I Date of preparation: June 2023 [1] Mendell JR, Lloyd-Puryear M. Muscle Nerve. 2013;48:21–26.

[2] Birnkrant DJ, et al. Lancet Neurol. 2018;17:251–267.

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33

enable competition

WIN

AN ARTISAN PICNIC HAMPER WORTH OVER

This issue, we’re giving Enable readers the chance to win a picnic hamper for two people, packed with delicious treats

£60

E

HOW TO ENTER Simply send us your name, contact details and where you picked up your copy of Enable

BY EMAIL TERMS AND CONDITIONS: All entries must be received by Monday 28 August 2023. The prize is one Artisan Picnic for Two Hamper which will be sent to the winner. The prize is nontransferable, non-refundable and there is no cash alternative. The contents of the prize may differ from the images and descriptions included here. One entry per household. The publisher’s decision is final. If you do not wish to receive further communications from Enable Magazine, include ‘opt-out’ in your entry. This competition is not being run in conjunction with The British Hamper Company.

34 enablemagazine.co.uk

competitions@dcpublishing.co.uk quoting Summer Picnic Hamper

ONLINE

www.enablemagazine.co.uk/summerhamper2023

BY POST

Competition, 198 Bath Street, Glasgow, G2 4HG All entries must be received by Monday 28 August 2023. Good luck!

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mbrace the warmer weather this summer and head outside for the perfect picnic. To help you indulge, we’re giving Enable readers the chance to win an artisan hamper, filled with luxury items.

This Artisan Picnic for Two from The British Hamper Company includes both sweet and savoury treats, including: vintage cheddar cheese; pickle chutney; water biscuits; smoked cheese biscuits; all butter shortbread; crumbly fudge; and luxury chocolate. All of this comes packaged in a traditional wicker hamper basket, perfect to re-use in the future.

“I would highly recommend the LIFT scheme if you are requiring more suitable accommodation for a disabled person.”

Francesca, LIFT scheme buyer

Tailored short breaks with 24 hr nursing care

If you have a disability and are in need of alternative housing, you could be eligible for up to 49% towards the cost of a home through the Scottish Government’s LIFT scheme*.

leuchiehouse.org.uk

Leuchie is a charity registered in Scotland no SC042249

Speak to Jo or Katy to book on 01620 892864

Denis Duncan House

Leuchie’s fully accessible, self-catering holiday home in Dirleton, East Lothian.

Find out more:

Text LIFT to 66777 www.linkhousing.org.uk/ LIFT-disability *Eligibility criteria applies.

To find out more and book, visit

denisduncanhouse.co.uk

Reliable Outdoor Rollator A rollator is a mobility aid that greatly enhances your autonomy. The Trionic Veloped rollator gives support and relief during any outdoor adventure.

If you find yourself experiencing balance issues, consider investing in an efficient walking aid to help with unsteadiness.

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SUMMER OF MOVEMENT

This summer, it’s time to add some extra activity into your routine and try something new to look after your health and tackle isolation

T

he summer months provide an opportunity to embrace brighter days and warmer weather, whilst presenting an opportunity to meet new people through activities and hobbies. There are a host of ways to look after your health and tackle isolation during the summer.

GET OUTDOORS Visiting parks and being around nature helps to boost your mood and can have physical health benefits. Heading out for a short walk is one of the simplest ways to incorporate more outdoor exercise into your routine, and visiting your local park, botanic garden or walking trail can make your journey interesting. You could even switch your usual transport to work for a walk to beat the traffic while working on your fitness.

Spending time in the outdoors can provide a multisensory experience for disabled children and adults alike. This can aid in building better communication skills, improving concentration and building long-lasting relationships with others.

To find accessible parks and walking trails near you, visit The Outdoor Guide (www.theoutdoorguide.co.uk) or Euan’s Guide (www.euansguide.com). If an exhilarating outdoor adventure sounds more exciting, companies like Equal Adventure (www.equaladventure.org) run a range of inclusive outdoor activities.

Many activities can be adapted to meet different needs 3

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CYCLING Like walking, cycling can be done in your local area solo, or you could join a local group. Hand cycling, tandem cycling, and e-cycling - when an electric bicycle is used to aid movement - have made cycling one of the most accessible activities.

It allows you to get some fresh air whilst exploring your city or the countryside. Different adapted bikes are available like tricycles which aid balance for people who need it, and recumbent cycles are available with seats positioned lower and with more support of the back, taking the strain off the rider’s legs and providing more balance. Companion cycles are also an option: a type of tandem bike which allows cyclists to sit side by side, rather than one behind another.

For more information on the different bicycles available and where to test ride them, visit www.getcycling.org. uk, or to find a cycling club near you go to www.britishcycling.org.uk/ clubfinder.

Finding accessible trails close to where you live can open doors to accessible cycles. The National Cycle Network is a UK-wide network of paths and routes for walking, cycling and wheeling. Discover more about the accessible paths from active travel charity Sustrans (www.sustrans. org.uk). You can also find your nearest Wheels for All inclusive cycling centre through Cycling Projects (www. cycling.org.uk), or use the Cycling UK website (www.cyclinguk.org) for tips on how to start cycling safely.

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GARDENING Did you know that gardening counts as a form of aerobic exercise? Getting active doesn’t have to mean working up a sweat. An afternoon spent planting, pruning or landscaping can improve muscle strength, finger dexterity and blood circulation, as well as reducing stress. Assistive equipment is available for use in the garden including adapted tools and raised beds, helping to make gardening accessible for everyone. Time planting is also a great way to socialise: get your friends and family involved, join a local gardening club, or rent a plot at your closest allotment. If you don’t have access to an outdoor space, you could utilise a space like the windowsill to plant herbs or indoor plants.

For more information on equipment, the benefits of gardening and what you can grow in the space you have available, visit www.accessiblegardens.org.uk or www.gardeningfordisabledtrust.org.uk.

YOGA Yoga is well known for being a calming and meditative practice, but it also helps build muscle strength and endurance. The practice can be tailored to suit different levels of ability and you can start from any level of fitness. Along with building strength, yoga can improve flexibility, dexterity and balance. Specialist adaptive yoga is normally a mix of styles and has been created in order to help disabled people, including wheelchair users, amputees and people with PTSD. Chairs are often used in adaptive yoga to make it accessible for all. To find your nearest yoga class visit www.yogahub.co.uk or www.yogability.org.uk

SWIMMING Being in the water is a great low-intensity exercise that works all of your muscles. The buoyancy supports your joints, muscles, spine, and your body weight, making it easier to exercise without having a negative impact on the symptoms of a disability or pain. For a good workout, you could try a class like water aerobics, aqua Zumba, or aqua jogging which normally involves light weights. To find your local accessible pool, club or a specialised instructor, visit www.swimming.org

ADAPTING ACTIVITIES If there is an activity you want to try but you can’t find accessible classes in your area, it could be the chance to adapt a form of fitness. Many activities can be adapted to meet different needs and organisations like Activity Alliance (www.activityalliance.org.uk) provide helpful information on how to do this. The organisation has a list of useful exercise advice, workouts, videos and guides, along with a breakdown of the STEP tool which can be used to adapt activities. STEP is an effective way to use household items to be active, standing for Space, Task, Equipment and People. On their website, Activity Alliance have guides on how disabled people can apply the tool to sports and activities. These guides are available in alternative formats including British Sign Language, audio and easy read.

Across the UK, disabled people’s sporting organisations are ready to open the doors to people looking to try a new activity. British Blind Sport (www.britishblindsport.org. uk), Special Olympics GB (www.specialolympicsgb.org. uk), Activity Alliance (www.activityalliance.org.uk) and Cerebral Palsy Sport (www.cpsport.org) all provide great opportunities to get active.

FOR MORE INFORMATION Organisations like Sport England (www.sportengland.org), Parasport (www.parasport.org.uk) and disability-specific charities can provide more information on getting active.

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3

enable life

Getting

FESTIVAL READY Summer has arrived, and if you are planning to attend a festival or another major event, it’s time to get prepared to ensure you can enjoy the experience

W

hat you need to prepare and consider for a festival is individual to your needs, where you are going and for how long, but there are some general points to consider regardless of these factors.

PREPARATION

If you have already purchased your ticket, it doesn’t mean its too late to enquire about accessibility or things like PA or carer tickets. Through the event website, you should find a wealth of information on accessibility, the layout of the festival, what facilities will be on site, and whether any equipment will be available to borrow during the festival. If you struggle to find this information online, or there are points that aren’t

It is good practice to make your way around the site and get your bearings

covered on the website, reach out to the organisers.

Larger festivals might have a dedicated accessibility team to help ticketholders in the lead up to the event and while they are attending, but if this isn’t the case, you can contact the general team to ask questions.

If you will be away from home, think about what you need to take with you in advance. This could include spare batteries for mobility equipment, any medication you take regularly or additional medication you might need in an emergency.

One of the best ways to prepare is to speak with people who have done it before. A quick search online using a review site like Euan’s Guide (www. euansguide.com) or on social media, will show you blogs and personal

accounts with information and advice on what to bring and what facilities are like if the festival happens every year. By doing your research in advance, you will be able to enjoy the experience more when you arrive.

FACILITIES

The facilities on offer at festivals often depend on how established the event is, who they have consulted during the planning process, and where it is located. In recent years, more festivals have taken feedback from the disability community on board and ensured there are Changing Places toilets or Mobiloos on site, accessible camping areas, and solid, well-lit paths to use.

In addition to these basic measures, many events have a dedicated fridge for guests’ medication in the medical area, mobility devices available to borrow on site, and disabled viewing platforms to ensure you get the full experience as an audience member. If you can’t see a facility you need detailed on the event’s website, get in touch with organisers as far in advance as possible to explain your requirements: like any venue, festival sites are required to make reasonable adjustments.

ON ARRIVAL

When you arrive at the festival and have found your camping spot or accommodation, it is good practice to make your way around the site and get your bearings. If you will require access to the medical area, accessible bathrooms or disabled viewing platform, knowing where these are located can save you valuable time when you need to take your medication or your favourite artist is about to start on the main stage.

FOR MORE INFORMATION For more information on accessibility at festivals, visit the Attitude is Everything website (www.attitudeiseverything.org.uk).

38 enablemagazine.co.uk

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EXPLORE SUMMER DESTINATIONS For more than 125 years, the National Trust has been helping people to benefit from nature, beauty and history, but now they are doing even more to help people with access needs visit sites around the country

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ith more than 500 places to enjoy, visiting a National Trust (www.nationaltrust. org.uk) site could be the perfect day out this summer. The charity has invested £9 million over the space of three years to upgrade infrastructure and facilities, with select sites benefitting from new access measures. The charity is introducing new pathways; Changing Places toilets; improved access for wheelchair users; specialist mobility vehicles to open coastal and countryside paths to more people; and silent spaces to provide respite in busy areas. This new investment builds on existing features: discover some of our top picks and what makes them accessible.

Wicken Fen

Hindhead Commons

Seaton Delaval Hall

Surrey, England

Northumberland, England

Hindhead Commons and the Devil’s Punch Bowl café is the first National Trust venue in London and the South East to offer a Changing Places toilet.

This facility, together with the opening of a new all-weather circular pathway which is suitable for pushchairs and wheelchairs, opens up more of the countryside around Hindhead for visitors with physical access needs.

In the near future, visitors will be able to make use of a new mountain trike wheelchair at Hindhead to explore the route’s collections of coins and medals from around the world.

Following a major project over the last few years, the Hall and gardens are now accessible via a new path network that includes level entrance to the Basement, Space to Change toilet and Brewhouse café, as well as mobility vehicles available for use. Subtitled and British Sign Language films are played throughout the Hall. The Hall will shortly begin a consultation with visitors on how to enable access to the upper floors of the central hall and West Wing.

Chirk Castle Wrexham, Wales

Calke Abbey 4

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At Chirk Castle, new path surfaces have created a balance between opening up access for everyone, and upholding the historical accuracy of how places would have looked in the past. The surfaces were recently changed from pea-gravel to a new hard surface that is much easier to use.

Outdoor wheelchairs and a mobility

vehicle is available to support visitors to explore the gardens and grounds at Chirk and new wheelchair accessible picnic tables can be found across the site.

Calke Abbey Derbyshire, England As well as a grand Baroque un-stately home, Calke Abbey has walled gardens and parkland, much of which is a National Nature Reserve. The park is a rich and varied landscape of grassland, ponds and wood pasture – one of the rarest habitats in Europe. There are accessible routes available to the gardens, the ground floor of the house and the Tramway Trail is an accessible figure-of-eight route which follows the old horse-drawn tramway that linked Ticknall to Ashby. It is suitable for cyclists, walkers, wheelchairs and pushchairs. Dogs can roam the parkland under close control, and on leads around livestock, in the gardens, stableyards, restaurant and shop.

Wheelchairs and trampers are available to borrow subject to availability.

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Wicken Fen

Charlecote Park

Cambridgeshire, England Wicken Fen is the National Trust’s oldest nature reserve, and England’s most famous fen.

There are accessible routes across the reserve, with boardwalks suitable for wheelchairs leading to bird hides where visitors can spy on the spectacular birds that call Wicken Fen home. There are also longer accessible routes across the wider Fen such as the Lodes Way, a path suitable for wheelchairs that can be used to access Baker’s Fen, a two mile out and back route. Accessible toilets are available as well as accessible seating at the café.

Portstewart Strand Northern Ireland

Kingston Lacy

PICS: ©NATIONAL TRUST IMAGES/JAMES DOBSON/CHRIS LACEY/ MIKE SELBY/ ANNAPURNA MELLOR

Dorset, England Home to the Bankes family for over 300 years, Kingston Lacy is an astonishing Italianate Palace in the heart of rural Dorset. With sweeping lawns, a Japanese Garden, woodland and parkland there’s plenty to explore. A firm favourite is the multi-use trail which passes through forest and along old carriage drives that were originally created by the Bankes family. Walkers, runners, wheelchair users and cyclists of all ages and abilities are able to make use of the 4.7km flat route, which includes views of the house.

The trail is also ideal for families who can choose a shorter route to the woodland play area. Three powered mobility vehicles are available for loan from Visitor Reception. Pre-booking advised, telephone 01202 883402 (line 2).

Kingston Lacy

Charlecote Park Warwickshire, England Take a family-friendly stroll through the ‘Capability’ Brown-inspired landscape at Charlecote Park at any time of year, along mown grassy paths that are suitable for bigwheeled buggies. The River Avon and the lake offer plenty of wildlifespotting opportunities. Along the route, you will see the thatched summerhouse, created by Mary Elizabeth Lucy in the mid-1800s for her grandchildren, uninterrupted views of the stunning landscapes, a vast array of wildlife and wild deer.

Two all-terrain mobility vehicles are available to book in advance, perfect for navigating the wider parkland.

Wallington Northumberland, England Gifted by Sir Charles Philips Trevelyan, Socialist MP and ‘illogical Englishman’, the 13,500-acre estate has something for everyone. The Trevelyans loved being outdoors and close to nature. The house is surrounded by a landscape of lawns, lakes, woodland, parkland and farmland, just waiting to be explored. Visit the West Wood and

you’ll find 2.4km of hard surfaced paths as well as ponds, four children’s play areas and a wildlife hide. Part of the Dragon cycle multiuse trail runs through the woods and is used by pedestrians and cyclists. A powered mobility vehicle is available on site.

Tarn Hows Lake District, England Enjoy spectacular views of the high Lake District fells in every season, on this easy, accessible walk around a tree-lined tarn. With tramper all-terrain scooters available to borrow, visitors who are less mobile can keep pace with their walking companions. The full trail is two miles and takes around one hour.

Tarn Hows is part of a designed landscape created by James Garth Marshall of Monk Coniston in 1865. He built the dam at the outflow of one of three small tarns and planted hundreds of trees to enhance the view. You might spot the eye-catching belted Galloway cows quietly grazing nearby. They belong to the tenant farmer and are becoming unlikely conservation heroes. This significantly improves the diversity of wildlife in the landscape.

CLAIM YOUR FREE FAMILY ACCESS PASS

The National Trust are giving Enable readers a free Family Access Pass, giving two adults and up to three children one-time access to an attraction.

Visit www.enablemagazine.co.uk/nationaltrustpass enablemagazine.co.uk for more information and full T&Cs

1200762112006

Portstewart Strand Beach is now an inclusive beach. Working in collaboration with the Mae Murray Foundation, the introduction of a beach equipment loan scheme, together with the installation of an accessible toilet that meets Changing Places standards, means that people with mobility, sensory and other needs can enjoy the beach in a way that wasn’t possible before.

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RECIPE

BEAT THE BUDGET’S

MINI SPICED HALLOUMI WRAPS With over 270,000 Instagram followers, Mimi Harrison is on a mission to find delicious food that isn’t expensive. Through her platform, Beat the Budget, the self-taught cook shares recipes to help people put good food on the table within budget.

This recipe was the first time I experimented with coating halloumi cheese in curry powder and wow, now it’s the only way I want to enjoy halloumi. The flavour combination is dreamy and when paired with a refreshing salad and a tangy sauce, all encased in a tasty wrap, it makes for the best speedy lunch. Purchasing the premade cabbage mix or coleslaw cuts the cost as you don’t have to individually buy the white cabbage, red cabbage and carrots for the slaw and it saves you time.

INGREDIENTS 2 tsp curry powder 1 tbsp rapeseed oil or olive oil 225 g halloumi, sliced into 1-cm strips 200 ml natural yoghurt or mayonnaise Juice of ½ lime 8 mini wraps 2 heads of baby gem lettuce, washed and sliced 275 g cabbage mix or coleslaw Small handful of fresh mint, roughly chopped (optional) Salt and pepper to taste

4

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STEPS 1. Add the curry powder and rapeseed oil to a bowl and stir to combine. Add the halloumi strips to the bowl and coat in the curry powder oil.

2. Set a griddle pan over a medium/ high heat, place the halloumi strips into the pan and fry until golden and crispy, for about two or three minutes on each side.

3. Meanwhile, for the dressing, combine the natural yoghurt with the lime juice, a pinch of salt and lots of pepper (use the juice from a quarter of a lime if you like less tang).

4. Take a mini wrap, add a layer of sliced lettuce and a serving of cabbage mix. Drizzle over some creamy, tangy yoghurt dressing and top with some of the spiced halloumi

Mimi Harrison

strips. Garnish with a little of the chopped mint leaves if you like. Fold the wrap over before devouring.

Repeat the layering process for each wrap.

Extracted from Beat the Budget

by Mimi Harrison (Ebury Press, £16.99)

PICS: © MIMI HARRISON

SERVES 4 PREP TIME: 5 minutes COOK TIME: 7 minutes

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VISIT ACCESSIBLE JERSEY THIS SUMMER The only hotel in Jersey designed specifically for people with disabilities is now open and ready to welcome you

M

aison des Landes has just reopened after the completion of a £3.8 million refurbishment project, and the results are quite spectacular. The newly refurbished Maison des Landes combines the relaxing atmosphere of a modern hotel with the very latest facilities for people with disabilities, their families and carers. Guests are able to relax in the hydrotherapy pool, enjoy the tranquil grounds and take in the beautiful views. The hotel has 23 specially equipped rooms, a 48-seater restaurant, a licensed bar and a beautiful lounge and orangery.

With the countryside in full bloom and the Island’s accessible attractions and activities in full swing, Jersey is at its best in July, August and September. Located on the edge of Jersey National Park, with its stunning views and protected wildlife, Maison des Landes is the perfect base from which to enjoy the Island.

Jersey’s French road names, quaint customs, beautiful coastline and network of green lanes, offer a taste of the continent, yet the Island is only a short hop from the UK. The hotel puts flexibility at the heart of every stay. Guests can choose to join an organised tour, or explore the Island on their own.

Make new friends in the bar, or just relax in quiet solitude. And then there are flexible mealtimes and delicious menu choices to indulge in. At Maison des Landes your stay can be whatever you want it to be.

The flexible approach also extends to our accommodation. Each of the 23 bedrooms is different, which means that the team can select the accommodation that will best suit your needs. Whether that’s inter-connecting rooms or specific facilities, they’re able to tailor your experience so that you can relax without worry.

And if you feel like getting out

and about, accessibility to local tourist attractions has never been better – from boat trips and specially designed beach wheelchairs, to historical sites and museums, the Island is well equipped to offer people with disabilities a really wonderful stay. We have a fleet of specially adapted minibuses which make it easy to get around too.

The hotel’s friendly and empathetic team are on hand to assist you and ensure that everyone has an enjoyable and memorable stay. And because we’re aware that carers need care too, we offer respite holidays for a few days or longer at any time of year. For a relaxing break, there really is no better place in Jersey for people with disabilities, their carers and those seeking respite.

FOR MORE INFORMATION For more information about Maison des Landes visit www.maisondeslandes.co.uk

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Relax in Jersey’s accessible hotel Stay somewhere special

Wheelchair accessible NEWLY REOPEN AFTER A £3.8 MILLION REFURBISHMENT The only hotel in the Channel Islands designed specifically for people with disabilities, Maison des Landes provides the relaxing atmosphere of a modern hotel and the very latest facilities.

• 23 specially equipped rooms • Lounge and orangery • Hydrotherapy pool • 48 seat dining room • Large tranquil gardens • Views of Jersey National Park

For more information please visit our website: www.maisondeslandes.co.uk, call 01534 481683 or email: reservations@maisondeslandes.co.uk

Self-catering log cabins in the Peak District countryside

Mobile hoist Specialist equipment Roll in wetroom shower Off-road wheelchair hire www.hoegrangeholidays.co.uk tel: 01629 540262

Limitless, British Cycling’s brand new inclusive club programme provides cycling opportunities for disabled people, regardless of age, impairment and ability.

Our ambitions is to create a network of inclusive clubs across the country, where disabled people can take part in cycling opportunities.

Whether you wish to try cycling for the first time, or you are an an experienced rider looking to take your cycling to the next level our network of Limitless Clubs will have an opportunity for you.

Scan the QR code or visit our website for more info:

www.britishcycling.org.uk/Limitless

enable motoring

ON THE ROAD Learning to drive can increase and maintain independence, and with specialist instructors and adaptations, it could be more accessible than you think

D

riving is often tied up in people’s identity and is essential to maintaining independence, it allows you to access day-to-day activities which can play a part in your mental health and wellbeing. It also offers more flexibility and peace of mind in comparison to public transport.

From lessons to insurance, there are tailored services available to not only teach you how to drive, but so you are confident behind the wheel.

LEARNING

Learning to drive might seem daunting at first, but most learners need around 30 to 40 hours of lessons to reach test standard: that’s the same as one full-time working week to receive a certification that will last you for life.

Across the UK, specialist instructors are trained to take your unique circumstances into account. These instructors will usually have adapted cars to help you learn for the first time or get back behind the wheel after acquiring a disability.

Driving Mobility (www. drivingmobility.org.uk) run centres including RDAC in Solihull, and can provide information on motoring.

At dedicated centres like RDAC, occupational therapists work alongside experienced specialist driving instructors to assess clients and ensure their needs are met.

Clients can self-refer or be referred by healthcare professionals and organisations like the DVLA and Motability. The centre looks at someone’s ability to drive along with adaptions, using a holistic approach to help get people on the road.

The adaptations available depend on your unique needs, but could include things like small grab handles and seats that swivel out of the vehicle to make transferring easier.

The Association of Disability Driving Instructors (www. disabilitydrivinginstructors.com) helps disabled people to learn to drive by connecting them with

specialist instructors. You can search for instructors in your local area and access helpful advice on things like adaptations, returning to driving, and learning to drive if you are hard of hearing.

Once you have your license you have to notify the Driver and Vehicle Licensing Agency (DVLA) about any medical conditions or disabilities.

COST AND INSURANCE

You could be eligible for funding to help you get your driving license through Motability. The charity offers access to mobility grants including the Driving Lessons Grant programme.

This covers the cost of up to 40 hours of lessons through an approved

instructor.

After you have passed your test, it’s important to find insurance that is tailored to you. Insurers can’t refuse car insurance or charge higher premiums to disabled drivers, but there are also specialist providers available.

Towergate Insurance (www. towergateinsurance.co.uk) and Adrian Flux (www.adrianflux.co.uk) both provide specialist insurance for disabled drivers.

FOR MORE INFORMATION Access advice on driving and funding at www.motability.org.uk

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45

REVIEW

GWM ORA FUNKY CAT

Alisdair Suttie reviews this new, small electric vehicle which has an unusual name, but there’s nothing strange about its comfort and quality

INSIDE The Funky Cat comes with quite a high-riding driving position for what is a supermini. This is partly due to the battery pack under the car’s floor, but the outcome is a comfortable driving position that gives an excellent view of the road ahead and to the sides.

There’s also better vision over the shoulder than in a Renault Zoe, and the GWM Ora comes with a reversing camera in the First Edition to further help with parking. However, it’s a shame the camera’s display can interrupt the view just when you need it for the last few inches of reversing.

The seats are supportive, there’s loads of room for the

46 enablemagazine.co.uk

driver, and the cabin is well put together. All the main information you need is clearly presented, and the rotary drive selector works well in this car.

However, the infotainment touchscreen is set too far away from the driver and is downright fiddly to navigate.

Sit in the back and the GWM Ora is generous with its room for passengers. However, the boot is only just up to a quick trip to the supermarket. You can tip the 60/40 split rear seats if you need more space, which will be necessary to fit in a wheelchair, so this is a fundamental drawback.

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Recharging is simple and the charging port is in the front left wing

PIP Advance Payment of £1,999.

Find out more at www.motability.co.uk

EQUIPMENT In this First Edition trim that is the only currently available, GWM Ora has gone to town. There’s a range of colours to choose for the exterior and interior trim, and it suits the brighter tones. Its leatherette seats feel good to the touch and are comfortable, while there’s keyless entry and starting. You also get automatic air conditioning, electric windows all round, front and rear parking sensors with 360-degree camera, and electric adjustment for the front seats.

There’s adaptive cruise control, traffic jam assist, reversing camera, and blind spot detection. The car also comes with rear cross traffic alert and braking to warn of cars approaching from the side that its driver might not see. However, all of this comes at a cost of a £1,999 PIP Advance Payment.

DRIVING The Funky Cat does well in town, where its battery range is claimed to be 193 miles. Recharging is simple and the charging port is in the front left wing, which means you can reverse into a space or drive in fronton. It has a 64kW charging speed, which is some way behind an MG4’s 100kW, and the MG has a bigger battery pack to offer a longer range than the GWM Ora’s 193-mile claimed maximum.

Performance is fine, but the tyres can scrabble for grip when exiting junctions. On more open roads the Funky Cat feels a definite step down from an MG4 whether you’re looking for fun or just decent driving manners.

This is also true of the ride quality

in the Funky Cat, which is not helped by the 18-inch wheels of the First Edition model. More concerning is the lane assist function that snatches the steering wheel in your hands way too often, which is unnerving when you naturally would steer a split second later. This system can be turned off, but this means navigating the pernickety infotainment set-up.

SUMMARY

The GWM Ora Funky Cat is good in bits, but bad in others that are vital to Motability users.

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47

THE THEATRE IS FOR EVERYONE! D A I LY T E L E G R A P H

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Find out more at motabilityonebigday.co.uk or call 0800 953 7000 Please quote MO1042K To test drive the cars you must bring your full UK driving licence and sign our test drive declaration on the day. Full Terms and Conditions can be found at motabilityonebigday.co.uk. One Big Day is organised and hosted by Motability Operations Limited, which is authorised and regulated by the Financial Conduct Authority.

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The diary 15 JULY

Learning Disability Pride, Onefest Mansfield As OneFest, a fringe festival for Mansfield and Ashfield, kicks off for 2023, the event’s first day will focus on Learning Disability PRIDE. The BSL-interpreted event will include speeches, a PRIDE march, and a line-up of different artists. Protests and poetry will also be a key focus of the event, helping to campaign for better toilet equality. The day will be followed by an After Party, featuring neurodivergent DJs.

onefest.oneconversation.co.uk

24 JULY

Samaritans Awareness Day Nationwide Help start a conversation on mental health and raise awareness of the Samaritans’ essential work this July. The day will include the charity’s annual awareness campaign, Talk to Us, to remind people that they are there for anyone who needs support or just someone to listen. Local events will take place around the country to mark the day, all featured on the Samaritans website. www.samaritans.org

Send your upcoming events to editor@dcpublishing.co.uk

16 JULY

Disability Awareness Day Walton Hall Gardens, Warrington Disability Awareness Day (DAD) is the largest not-for-profit, volunteer-led disability exhibition, held every year in Warrington. This year, attendees can expect more than 200 exhibitors, equipment suppliers, employment and support groups and more. The event will have a Sports Zone and Performing Arts Marquee, alongside a silent disco and more. DAD is free for all visitors, showcasing what disabled people can do.

www.disabilityawarenessday.org.uk

12 AUGUST

One Big Day Harrogate Yorkshire Event Centre Learn about the latest range of products available on the Motability Scheme and meet Scheme partners and experts at One Big Day Harrogate from Motability. The event is free to attend and is suitable for the whole family. More than 60 cars, Wheelchair Accessible Vehicles and adaptations will be on display, alongside the chance to test drive adapted vehicles and have your questions answered. www.motabilityonebigday.co.uk

12 AUGUST 25 AUGUST

Superhero Tri

Guide Dogs Midlands Family Fun Sports Day

Dorney Lake, Windsor

West Bromwich Albion Football Club Throughout the summer, national charity Guide Dogs are hosting family events, suitable for people of all ages who are blind or have a visual impairment. At the end of August, the charity will welcome families to the West Bromwich Albion Football Club for a Family Fun Sports Day with plenty of opportunities to take part.

Children with a visual impairment and one parent or guardian can book their slot for free, and additional immediate family members cost £5.00 each.

Don your finest superhero outfit and take on your chosen challenge with the help of a celebrity team leader at this year’s Superhero Tri event, powered by Marvel. The event has no equipment or age restrictions, so everyone can take part in the three stages: a swim, cycle and a push or run. Participants can complete all three or have their sidekicks do different stages as part of a relay. There are three distances to choose from on the day, but all participants have to sign up in advance to register their place. www.superheroseries.co.uk

www.guidedogs.org.uk

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enable life

The Assure life-saving wristband With SOS buttons, fall monitoring, the ability to be monitored remotely and household temperate warnings, the Assure provides uninterrupted protection, giving family peace of mind. Users can call for help by squeezing the wristband and it also monitors for severe falls so help is always at hand.

Acticheck, from 49p per day 0345 257 5080 www.acticheck.com

KIDS

Calming weighted animal Created for both adults and children, these Calming Weighted Animals come in two sizes and weights, 30cm and 350g, or 60cm and 900g. Providing comfort and companionship, the animals can help relieve anxiety, allowing users to feel secure and calm. Each animal is made from allergy-free materials and is also easy to wash.

Squishy Plushies, from £36.00 hello@squishyplushies.com www.squishyplushies.com

Product picks SLEEP

MOBILITY

HEALTH

Fidget Widget tool kit This set of five fidget tools is the results of eight years of research and development from Relish, the University of Central Lancashire and the Alzheimer’s Society.

Allowing people with dementia to engage in meaningful activities, the tools can relax users.

Relish, £79.98 inc VAT 0203 488 2001 www.relish-life.com

Send us details of your products to

editor@dcpublishing.co.uk

ORTHOTICS

Sleepypatch sleep promoting stickers

Veloped rollator

DMO Custom Suit

Available in a pack of 24, these Sleep Promoting Stickers use a combination of essential oils to help calm the nervous system, the mind, and to create a relaxing environment to aid sleep.

Safe for children aged two and over, the patches can be stuck to pyjamas at bed time, lasting up to four hours.

A rollator is a mobility aid that enhances your autonomy. The Trionic Veloped rollator gives support and relief during any outdoor adventure. It can overtake curbs, rocks, roots and other obstacles without losing ground contact, making it one of the most reliable walking aids on the market.

The Veloped will even aid you on visits to sandy beaches this summer.

Natural Patch, £13.00 care@naturalpatch.com www.naturalpatch.co.uk

The DMO suit is designed to align the shoulders, torso and hips whilst improving symmetry and stabilising the trunk, pelvis and spine. The custom suit provides non-restrictive support to maximise postural stability and aids distal control, and can also influence muscle tone.

Trionic, POA 0330 818 1586 www.trionic.uk

DM Orthotics, POA

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01209 219 205 www.dmorthotics.com

PICS: ©ACTICHECK; NATURAL PATCH; DM ORTHOTICS; TRIONIC; SQUISHY PLUSHIES; RELISH

SAFETY

theHYDRATIONfoundation Solving a drinking problem – if you struggle to reach, lift or hold drinks, we are here to help.

We are a small charity dedicated to helping vulnerable people drink without needing to call for help.

DESIGNED FOR YOU. BUILT FOR YOU. GEBERIT AQUACLEAN MERA CARE. THE SHOWER TOILET MADE FOR

We deliver the Hydrant drinking system free of charge to those in need.

This can be done directly or through carers or other healthcare professionals.

How to get one delivered?

Simply email details of where you would like a Hydrant delivered to: requests@thehydrationfoundation.org At Geberit it’s always been our goal to create a product that would make a difference to the way our customers live their daily life.

www.thehydrationfoundation.org contact@thehydrationfoundation.org 0800 0436 003

Whatever happens, wherever it happens, whenever it happens, help is at hand.

The Geberit AquaClean Mera Care shower toilet offers unrivalled product features that play a vital role to ensure that people of all ages can regain their independence and dignity in the bathroom.

That’s why the Geberit AquaClean Mera Care is made for you. geberit-aquaclean.co.uk/care

® The Assure

Life-Saving Wristband SOS Alert A simple squeeze of the wristband calls for help.

Fall Alert Monitors for severe falls.

I’m OK Checks The simple way to confirm you’re OK in the morning and before bed.

Uninterrupted, comprehensive protection in your home, garden and beyond.

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acticheck.com 0345 25 75 080

enable finance

Money

updates

£

£

£

As the cost of living crisis continues, discover financial support you could be eligible for and when to expect it

COST OF LIVING SUPPORT As July started, eligible households should have received the first in a new cohort of cost of living payments. The initial payment of £150 was due to reach accounts by 4 July for people who are eligible, with those in receipt of certain benefits automatically receiving the new payment.

Throughout 2023 and into 2024, these additional payments will continue, totalling up to £1,350 for some households. Originally announced as part of the Spring Budget in April 2023, households receiving means-tested benefits will receive £900 in payments during this time period, with additional funding for pensioner households in the form of a one-off £300 payment during the winter months. The next payment is expected during autumn 2023, with the last during winter 2023/24.

THINKING AHEAD The price of energy tariffs is due to come down during July 2023, but with no changes to the standing charge for gas or electricity, there is no solid indication of how much this will affect household bills. As we think ahead to autumn and winter, disabled people’s organisations are continuing to campaign for more financial support, and for the introduction of a social tariff. This would see discounted energy bills for households facing higher energy costs, including disabled people, carers and older people who are struggling with bills.

52 enablemagazine.co.uk

UNIVERSAL CREDIT AND CHILDCARE Families receiving Universal Credit childcare support will see the biggest ever expansion of the provision in the coming months, as the government increase the maximum childcare payment by almost 50 per cent. Starting from 28 June 2023, the limits will increase from £646 to £951 for people with one child, and from £1,108 to £1,630 for people with two or more children. This new support aims to help people get back in to work, and will also cover the cost of the first month’s childcare when someone re-enters the workforce or significantly increases their hours.

REVIEWING YOUR SUPPORT As interest rates go up, and the price of food and other essentials rises, reviewing the financial support you already receive could be essential in increasing your income. The simplest way to do this is running an eligibility check through the UK Government website (www.gov.uk), allowing you to see what benefits or other support you could receive. If you are already in receipt of certain benefits, or you live alone, you could be entitled to a discount or reduction on your council tax. This could apply if someone you live with is disabled and has an additional kitchen, bathroom or other room which is used to meet their needs.

FOR MORE INFORMATION If you need financial advice or help finding out if you are eligible for support, contact Citizens Advice (www.citizensadvice.org.uk, 0800 144 8848), Money Helper (www.moneyhelper.org.uk), or Turn2Us (www.turn2us.org.uk, 0808 802 2000).

TACKLING COUNTY LINES The term county lines covers a range of criminal exploitation of vulnerable people, and for the parents and carers of young disabled people, knowing how to spot the signs of this activity is essential

B

etween January 2018 and April 2019, more than 4,000 young Londoners were involved with county lines, just a snapshot of how many young people are being exploited around the country. Traditionally the term referred to the transportation of illegal drugs from one area to another, usually by children or vulnerable people who are coerced by gangs, but now, the phrase is used to refer to a wide-range of child exploitation including sexual and financial abuse.

From March 2020 to April 2021, St Giles helped more than 600 children and young people out of county lines across the UK. The charity which is based in London has been helping to tackle this type of exploitation for nearly a decade.

Jonathan Ogundeji is the SOS+ Service quality and content lead at St Giles. This service is focussed on providing preventative sessions and programmes so that parents and practitioners who work with vulnerable young people are informed. All of the facilitators at the organisation have lived experience of being exploited by gangs, so understand the realities of county lines and gang involvement.

“When we say county lines we’re talking about drug dealing, gangs using young people and adults from major cities and going into other areas, that’s the actual definition of it, but we’re seeing the model evolve,” highlights Jonathan. “It could be local drug dealing, it could be children getting sent to different places across the country. When we say county

54 enablemagazine.co.uk

lines now, we’re talking about different forms of exploitation.

“There’s always different things that come up around county lines, it could be the financial element, online exploitation, we’re always trying to see what new trends are coming up and how we can tackle that.”

St Giles’ work on county lines centres around providing preventative education, but also support for people who are already involved in gang activity.

“We’re trying to challenge attitudes and debunk the myth of the glamour that the lifestyle initially presents,” explains Jonathan. “For those that are already involved, we want to give them the support they need to keep themselves safe and to give a safe and beneficial pathway after it, whether that’s employment or another vocation.”

SIGNS

For young people themselves, but importantly parents, carers and practitioners who work with children and vulnerable people, it is important to understand and recognise the signs of exploitation. The earlier an intervention is made, the faster they can get support.

“Gangs, individuals or groups that are trying to exploit people are always trying to offer them something that they need,” offers Jonathan. “That could be something tangible like money or gifts, or something intangible like acceptance and friendship.”

Some of the main signs to look out for include unusual amounts of cash, new or additional phones, if a young

person is on the phone a lot more than usual, or they aren’t using their regular phone as much as they normally would.

“Often in the early stages they’re just asked to keep something in their bag or their room so they might be particularly secretive,” explains Jonathan. “If they have new friendship groups and they’re being vague about where they’re going or they’re going to an area where they have no strong connection.

“Look out for paraphernalia as well, this may be one that isn’t picked up on straight away but things like cling film, bags or baby wipes, condoms are another one because these are often used to package drugs.”

If a young person has their own property or lives in shared accommodation, gangs may target them in order to use their property.

“It could be used as a stash

A lot of time gangs will target disabled people for those particular reasons

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house or a drug house, a lot of time gangs will target disabled people for those particular reasons and feign a friendship so that they can take advantage of them and their home,” states Jonathan.

COMMUNICATION

A key factor in spotting county lines activity and in tackling it is communication.

“Be wary of the different ways gangs can communicate, there’s so many social media platforms we focus on, there’s Snapchat where messages can disappear after 24 hours, Instagram, another one that has gained popularity is Telegram,” highlights Jonathan. “If they are playing in online chat rooms or on games sites, a lot of gangs are on there as well.

“Have an idea of where your child spends a lot of time online and understand that there’s a possibility people are trying to chat with them. A lot of parents I’ve spoken to have now

got access to the apps their children have on their phones or have a screen time limit for the younger children.”

Being able to communicate in a non-judgemental way with a young person is essential to helping them understand they are being exploited.

“If your child is neurodivergent that can come with a lack of understanding of social ques,” offers Jonathan. “Some gangs will start a friendship and take advantage of someone because they don’t realise the difference between that and a genuine friendship. In these cases, open communication is very important so that they don’t feel they’re being attacked for having a certain friendship group.”

This effective communication could also mean that a young person is more likely to open up to you when they need help.

NEXT STEPS

If you have questions about county lines, or you are worried that your child

is involved in gang activity, there is expert support available to help.

“If you have a couple of questions or you want anonymous advice, they can call Childline, the NSPCC, or use our online live chat,” offers Jonathan.

“You can reach out to us and a case worker, mentor, or family worker will help depending on the appropriate intervention.

“Once we’ve given support and pulled them out of that, we’re able to look at why they were vulnerable, that might come down to money, identity, belonging, and we can use that to inform their steps moving forward.”

FOR MORE INFORMATION Access more information and advice about county lines and support from St Giles (www.stgilestrust.org.uk), or contact the NSPCC for information and advice (www.nspcc.org.uk, 0808 800 5000).

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We all welcome a little extra assistance now and again, particularly when travelling alone. Thistle Assistance is an initiative to help you feel safer and more comfortable when using public transport.

thistleassistance.com

enable life

A global impact Imagine a world where no barriers existed for the disability community. It might seem like a far-fetched dream, but one organisation believes that by working together, it is possible

F

ounded by Martin Essl in 2008, the Zero Project uses a research-driven approach to identify, curate and share inclusive solutions to existing barriers by engaging with a worldwide network.

Each year, the project selects and awards innovation solutions based on three key criteria: impact, innovation and scalability.

SOLUTIONS

“We find and share solutions that improve the daily lives of people with disabilities, for legal rights, for human rights, disability rights,” offers Robin Tim Weis, director of international affairs at the Zero Project.

Nominations are open to organisations big or small and this relationship doesn’t end once awardees are selected: their work and contact information is added to a digital database that anyone can access.

This network is currently made up of more than 6,000 people from over 100 countries.

“We want to provide a space where everyone has the same opportunity, regardless of if they’re Google, Microsoft, or an individual who does fantastic work,” emphasises Robin.

PIC: © ZERO PROJECT/PEPO SCHUSTER, AUSTROFOCUS.AT

OPEN

Anyone can use the network to search for information or inspiration.

“Everyone has a role to play in the disability space and that’s really a method we try to communicate,” explains Robin. “Why restrict the wealth of information we have to someone who is in our organisation or at our conference in person?

“Everyone can be contacted directly without any involvement from our end, so technically you have the same access as some of our closest partners of the last 10 years.”

The aim of this open access is to remove barriers in a faster and more effective way: it saves people money and time if they are able to reach out to

someone who has done it before and ask for information, advice, or even to replicate it in their own area.

CONNECTING

The Zero Projects holds an annual conference at the United Nations in Austria, bringing together members of their network after awardees are named on the International Day of Persons with Disabilities on 3 December each year.

“The disability inclusion space globally is quite small so there should be a space which is devoid of ego,” offers Robin. “Our three-day conference has sessions covering a bandwidth of topics from disability and health services, inclusive homes, all the way to how disabled people can lead healthy sex lives.”

The disability inclusion space globally is quite small

Putting your idea forward includes a detailed application form which takes around three hours and gathering evidence. This is then sent on to peer review experts who have knowledge relevant to each country and discipline.

“If you are based in Paraguay and you nominate an inclusive school, the Zero Project would never review that nomination ourselves,” states Robin.

“We rely on our peer review experts because none of us have ever lived in Paraguay, none of us speak Spanish fluently or have an understanding of the educational standards in Latin America.”

The project is always looking for more peer review experts to judge applications and help works towards a world with zero barriers.

“I want to make an open call to Enable readers,” shares Robin. “If you want to become a peer review expert or you want to nominate then reach out to us: we would love to hear from you and see how we can work together.”

FOR MORE INFORMATION Discover more about the Zero Project or search the database online at www.zeroproject.org

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Maximise your independence with QEF Do you have reduced mobility or a disability?

Are you recovering from a stroke or an operation?

QEF’s expert services can support you.

From mobility equipment hire to driving assessments, bespoke children’s equipment to neuro rehabilitation.

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enable employment

Ease into work Could an apprenticeship or supported employment programme help you enter the world of work and find your first role?

E

ntering the world of work means earning a wage and building a career, but it can also aid independence and help you to build confidence. Finding your first role might seem overwhelming, but a supported employment programme or an apprenticeship is a structured and assisted path in to the workplace.

APPRENTICESHIPS

Pursuing an apprenticeship is a great way to enter a new profession or to launch your career. They can even be the right path if you’re looking to make a career change after you’ve already been in work for a number of years. An apprenticeship lets you study and work at the same time, combining practical and academic learning, all while getting paid for doing so. You’ll get the chance to spend some of your time studying at university, college or at home, and this will be funded by your employer.

This opportunity helps you gain the skills and knowledge you need for your chosen career, and can cut out years of time in education if this isn’t best suited to you.

In the UK, there are more than 600 apprenticeships to choose from in a range of industries from technology to engineering, and creative and design.

There’s something to meet everyone’s interests. Depending on where you live, there are different categories of apprenticeship: in Scotland these go from foundation to modern then graduate, whereas in England these

are intermediate, advanced, higher specifically for young disabled people. and degree. The range of levels Usually, this gives people the chance means that there is a chance to work with a local employer for everyone to explore an to gain training and skills, apprenticeship, and that but it can also lead to You can ask the path can provide a qualifications in a particular for reasonable more gradual entry into industry. adjustments the world of work: some The study programmes while doing an apprenticeships can be are provided by further apprenticeship part-time with a minimum education colleges for of just 16 hours per week.

16 to 24-year-olds and can Researching the be a great fit for people with apprenticeships available in your a learning disability who need area is simple thanks to information extra support entering the workplace. providers like UCAS With tailored opportunities within (www.ucas.com), the UK healthcare and other industries, this Government’s Apprenticeships site can bridge the gap between education (www.apprenticeships.gov.uk), and and full-time employment while the Scottish equivalent building confidence. Disabled people’s (www.apprenticeships.scot). organisations including Mencap (www. mencap.org.uk) can give advice on supported internships.

SUPPORTED EMPLOYMENT Like apprenticeships, supported employment programmes and supported internships provide a FOR MORE INFORMATION gateway to the workplace while Discover more information about paths to maintaining structure. Often, employment through the National Careers supported internships are geared Service (www.gov.uk) and Prospects towards young people, and some (www.prospects.ac.uk). organisations provide opportunities

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Superdrug & Savers Apprenticeships are inclusive, adaptable and could be the perfect fit for you!

Two of your favourite High Street health and beauty retailers offer support and get you on to the employment ladder. From application to interview and throughout your time with us, this Disability Confident employer is here to help.

With apprenticeships available in store, in our distribution centres and in our head offices, we’ve got just the role for you, no matter your disability.

You will be supported to make the most of your ability. Reasonable adjustments are available, from additional breaks to physical tools to help you during your career with us.

Regardless of your position you will receive support from your line manager, plus all our apprentices get an experienced assessor who gives 1-2-1 support.

The company’s DisAbility network was created in 2020 to listen to, learn from, and directly support anyone who has a disability or long-term health condition.

So far, they have raised awareness and supported team members to learn sign language, tackle isolation and focus on the ability not disability of everyone who works with us.

www.superdrug.jobs www.savers.jobs

enable employment

Jane Hatton Jane is the founder of Evenbreak, a social enterprise run by and for disabled people, with a specialist job board and a career hive.

Send your questions to editor@dcpublishing.co.uk

EMPLOYMENT Q&A

IDENTIFYING TRANSFERABLE SKILLS

In her column Jane Hatton, founder of Evenbreak, answers your employment questions

Q

I lost my job through becoming disabled, and I don’t know where to start looking for new work. I feel I have no skills to offer now.

Make a list of all these transferable skills, and remind yourself you have so much to offer

A

A cq uiring a disability or longterm health condition can e a shock , and it’s common to go through a grieving process for the life you once had. B ut it doesn’t mean your new life can’t be eq ually ulfillin and interestin al eit in di erent ways and it certainly doesn t mean you lose all of your sk ills!

You will have developed many skills in your previous jobs. The important point is to focus on the skills, rather than the job titles. What skills are transferable to other roles? This could include skills around teamwork; project management; managing time, resources, or people; computer skills and many, many others – all of which are transferable.

You were born with a range of skills, and will have developed further skills throughout your life. You may have skills around music, sport,

art, cooking, writing or other interests.

Those activities we consider to be hobbies can develop a whole range of skills relevant to the workplace.

And don’t forget the skills you have developed through facing different barriers since becoming disabled.

Creative thinking, problem solving, finding new ways of doing things you previously took for granted.

Make a list of all these transferable skills, and remind yourself you have so much to offer an employer. If you need some support with this, the career coaches at Evenbreak can help you.

They also became disabled as adults, so understand the situation.

Visit the Evenbreak website to access candidate resources free of charge: www.evenbreak.co.uk hive.evenbreak.co.uk

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enable employment

CALLING FOR INCLUSIVE WORKPLACES Only one in three disabled people feel their employer is genuine about removing barriers in the workplace, but what needs to change to make inclusion a priority at work?

I

n June, the Great Big Workplace Adjustments Survey 2023 was released, marking one of the biggest pieces of research ever conducted on the subject. With nearly 2,000 contributors, the work revealed some concerning figures on the discrimination that disabled people continue to face in the workplace.

ADJUSTMENTS

The research, conducted by Business Disability Forum (BDF), looks at the experiences of around 1,500 disabled employees and 400 managers, asking them about workplace adjustments and inclusion. These findings build on previous research which was conducted by the organisation in 2019. The results demonstrate that disabled people are still waiting too long for essential adjustments in the workplace, keeping barriers in place for longer.

Only one in 10 disabled employees said it was easy to get necessary adjustments, and for one in eight, the process was taking over a year. Concerningly, even once these adjustments were in place, half of those surveyed said that disabilityrelated barriers still existed in the workplace.

“Disabled people are telling us that getting what they need in work can be really difficult,” highlights Angela Matthews, head of policy and research at BDF. “Often, people have to push to get adjustments to their role and to get the tech and equipment they need.

“We will be using the research to talk to employers about how to improve the experiences of disabled employees as well as considering the broader

62 enablemagazine.co.uk

implications of the findings.”

Whilst there is still an urgent need for improvements to ensuring employees have the adjustments they need, it was also found that managers now feel more confident talking about disability than they did previously, and play a key role in the adjustments process, although they often have limited powers in making this process move faster.

DEVELOPMENT

These barriers go beyond reasonable adjustments which employers are required to make by law: they infiltrate the wider working environment. Disabled employees are experiencing bullying and harassment, limited promotion and development opportunities, and programmes and initiatives are often still inaccessible.

BDF are calling for change, asking for employers to simplify their workplace adjustments process; provide more support for managers and the role they play in workplace inclusion; and to develop a wider workplace approach to understanding the experience of having a disability, and removing disability-related barriers.

“There is a call to action here for employers but also for everyone,” stresses Angela. “Poor behaviours at work are fed by poor behaviour elsewhere. Microaggressions, negative assumptions, and a general lack of awareness, are also in our workplaces. To remove disability-related barriers in the workplace, we also need to address the barriers in wider society.”

There is a call to action here for employers but also for everyone FOR MORE INFORMATION Read the full research report and find out more about your rights at work on the Business Disability Forum website (www.businessdisabilityforum.org.uk).

A place of possibility We are Derwen! A specialist college for young adults with special educational needs and disabilities (SEND), including: • Learning and physical disabilities • Autism • Behaviours of concern • PMLD

Short Breaks at Derwen offers adults with learning disabilities and associated needs the opportunity to take a break and enjoy themselves.

Our vibrant community works together to create a relaxed and positive environment that helps our young adults prepare for real life.

Our students learn work skills in our public-facing garden centre and shop, café, restaurant, charity shop and training hotel, increasing their chances for employment and independent living post-college.

We build your programme of activities around what you enjoy doing.

It may include:

For adults with learning disabilities

• cooking • swimming • trips to local attractions • games console An initiative of Derwen College Charity RCN: 1153280

01691 779243 shortbreaks@derwen.ac.uk www.shortbreaksatderwen.co.uk

Tel: 01691 661234 Email: admissions@derwen.ac.uk www.derwen.ac.uk

SKILLS FOR LIFE Independence can be different for everyone, but having everyday skills is important regardless of your abilities. Across the country, different organisations are helping people to gain essential skills to help them live a meaningful life, and to progress in education and employment

SAFE AND SOUND

SKILLS FOR LIFE AND WORK

Disability Resource Centre www.disability.co.uk This series of workshops from the Disability Resource Centre is just one of the services they provide to equip disabled people with the skills and knowledge necessary to live an empowered life. The eight week Safe and Sound programme is aimed at adults with a learning disability or long-term health condition, and consists of interactive workshops and activities. Throughout the programme, participants will gain knowledge and confidence around money; relationships; personal safety; disability rights; mental wellbeing; safety in the home and more. Safe and Sound is delivered at the Disability Resource Centre in Birmingham, but can also be held at community organisations if a large group is interested in taking part.

Glasgow Clyde College www.glasgowclyde.ac.uk Around the UK, colleges offer courses to help young people build life skills, and often these are tailored to meet the needs of young people with a learning disability who could benefit from additional support. This national qualification (NQ) from Glasgow Clyde College takes place over the space of two years, helping young people with a learning disability to gain skills for life and employment through project-based work. Communication, timekeeping and problem solving are key focusses, alongside other subjects like how to use assistive technology; independence and travel; social media awareness; money handling and numeracy; teamworking and enterprise skills, and more.

This course can be personalised depending on each individual’s

needs and experiences, but requires young people to be able to work independently and with others.

HERITAGE FUTURES AND LIVING SKILLS Chailey Heritage Futures www.chf.org.uk Chailey Heritage Futures is supported accommodation that provides a stepping stone from school or college into adult life for young disabled people. This can be an exciting but challenging time for young people and their families, with a lot of choices to make about their future.

In a relaxed and safe environment, young disabled people up to the age of 25 can live and learn with people who have similar needs.

The accommodation offers a fun environment with a focus on informal learning, helping young people to gain essential skills they will need in adult life. The charity also has a Leisure and Skills Centre, with the opportunity to focus on Living Skills. With a variety of sessions ranging from one hour to two hours in length, the centre has an adapted kitchen to help people learn through cooking sessions.

INDEPENDENT LIVING SKILLS Pursuing Independent Paths www.piponline.org.uk Based in London, the Pursuing Independent Paths (PiP) team work with adults with learning disabilities to help them achieve their ambitions, gain skills, and provide opportunities for independence.

By delivering independent living skills sessions, PiP help empower people to achieve their ambitions.

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There are four sessions available, each with its own focus. Travel Training helps people to use transport independently; Independence in the Community helps people build networks and connections to tackle isolation; Independence at Home focusses on supporting young people, their families and carers to develop independence around the home and when moving into independent living; Advocacy and Campaigning support people to have a voice and express their views and opinions.

INDEPENDENT LIVING AND TRAINING Harrow Association of Disabled people www.had.org.uk Based in the Red Brick Café, Harrow Association of Disabled people (HAD) are able to offer training opportunities

to help people gain or improve essential living skills. The training available includes basic food and hygiene, shopping with confidence, travel training, healthy lifestyle, basic cooking and more. HAD believe independence is about being able to make choices, and making the best of your abilities to live life as you want to.

The organisation can also help people to prepare for, seek and maintain employment or a volunteering opportunity. Alongside the training offered at the Red Brick Café, the association also runs Changes, an integrated nightclub helping people to socialise, and ASAP, a group where autistic adults can learn new skills.

LIFE SKILLS Barclays www.barclayslifeskills.com The LifeSkills resource from Barclays is free to access for anyone looking to develop the skills, knowledge and

confidence they need for everyday life and when looking for employment.

The information from LifeSkills is split into sections, each one appropriate to a different audience, including school; sixth form; college; university; starting your first job and working life. The content is specific to each category, and stretches further than the skills people need for work: there is information on money and budgeting, looking after your mental health, staying motivated, overcoming setbacks and more. By working through the different information at your own pace, you or your loved one can gain valuable qualities and advance the skills you already have.

FOR MORE INFORMATION National charities like Mencap (www.mencap.org,uk), Scope (www.scope.org.uk) and Leonard Cheshire (www.leonardcheshire.org) can provide advice on gaining life skills and independence.

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PROVIDING ESSENTIAL SUPPORT OVERSEAS Thousands of miles away, people in Kenya are using an innovative technique to ensure disabled children, particularly those with cerebral palsy, are receiving suitable equipment and support, but the project was born here in the UK

T

he Potter’s House and APT Kenya are working directly with families and communities in Njoro, Kenya to address the needs of disabled children by making assistive devices like standing frames and chairs from paper.

APT stands for appropriate paper-based technology. In a country where there is little support for disabled people, and where stigmas persist, APT Kenya and The Potter’s House are changing the lives of children and young people, and helping the community while they do it.

HOLISTIC

Cath Barton, a physiotherapist, and Ruth Stevens, chair of The Potter’s House and whose daughter has cerebral palsy, are integral to the project’s success. Having met through

a mutual connection - Ruth’s daughter’s consultant paediatrician - they both had knowledge of APT and shared a common goal: providing appropriate equipment and holistic support.

“I was part of starting The Potter’s House in 2018, working with families and community groups, and part of that work is our disability support groups,” reveals Ruth. “Through those we started to see these children that are just left lying at home with no stimulation, no proper equipment, no care.”

Ruth and Cath met and soon APT Kenya was formed, in turn bringing the technique into The Potter’s House.

APT

In February 2022, a team went to Kenya to train people in the community to make devices using APT. The technique uses three layers of flattened cardboard boxes, stuck together with a flour and water paste, to form boards. These are

then used to create the pieces of each device, put together using paper rods and straps created from tights, before layers of ripped up paper are added with more paste. The last layer consists of a thin brown paper, like flour packets or potato sacks, before the devices are painted and decorated. Each bespoke device takes around 40 hours to make, and The Potter’s House has made more than 130 devices so far.

“These are all bespoke: once a month a therapist will come in and assess children, taking very precise measurements for each part of the frame, so they are made to these exact specifications,” highlights Ruth.

This means that disabled children are now able to be fed properly, and their quality of life has improved.

IMPACT

The project doesn’t just provide devices, but also offers support to the local community. People are employed to make the frames, use their sewing skills to make the straps or cushions for support, or to add the final touches to devices with paint. The project also runs support groups, offering parents a chance to meet people in a similar situation.

“It isn’t just about the families where children have disabilities, it looks at the whole community,” offers Cath. “This makes such a difference.”

FOR MORE INFORMATION Learn more about APT Kenya and The Potter’s House at www.thepottershousecbo.com

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We’re here for young wheelchair users

McKenzie

Kiyo-Rei

Alfie?

Carmela

Millie-Rose

1 in 5 children might not get a wheelchair from us this year The cost of living crisis has made it 20% more expensive for us to provide a young person with a wheelchair that meets their needs.

We are Whizz-Kidz, the UK’s leading charity supporting young wheelchair users up to 25 years old. Help us make a young life unstoppable.

Donate now at:

whizz-kidz.org.uk/donate or call 020 7798 6111

Or you can scan to donate

Registered office: 2nd Floor, 30 Park Street, London, SE1 9EQ © Whizz-Kidz 2023. Registered charity in England and Wales (802872) and Scotland (SC042607). Company registered in England and Wales (2444520)

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