to some young people as all of the participants in the trial took part voluntarily and almost half of these participants said they would have taken part without remuneration. What are your top tips for anyone thinking about a similar activity? (As many as you can) 1. Work closely with people with experience of working with the young people you are targeting (school teachers, youth offending teams, youth centre workers) 2. Choose a subject that personally affects individuals in the target group so that it has relevance 3. Carry out research with the target group to get preliminary data about issues that are relevant to the group 4. Be prepared to change your project if it isn’t working as planned, but work closely with your advisory group (which, in our case, consisted of those with expertise in NDNAD, youth work, law, public engagement and social sciences, as well as representation from the Welsh Assembly Government and HGC) and funders (in our case, the Wellcome Trust) to take into account the views of all stakeholders 5. Where possible, provide opportunities to input into current consultations, so that participants can see that their views are important to the democratic process 6. Provide opportunities for the young people (not the project team!) to present their views to decision makers (in our project they personally presented to the Welsh Assembly Government and the Human Genetics Commission) Please attach any photos from the event or quotes from participants (if you are happy to share them) Please see www.dnadatabaseontrial.org
Comments Please share a1ny further comments The project report is available from the website or as a hard copy on request from the project partners. A DVD of the trial is available on the website. The team published two papers, on the research that preceded the project, and on the trial itself: Avoiding the “usual suspects”: young people's views of the National DNA Database (2010) R. Stackhouse; C. Anderson; A. M. Shaw; R. Iredale. New Genetics and Society, 29 (2) pp 149 – 166
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