Cicely Saunders Institute EAPC programme

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Cicely Saunders Institute

Welcome to the 12th Research Congress of the European Association for Palliative Care This document highlights contributions of the Cicely Saunders Institute, King’s College London to the EAPC congress 2022, including details of interactive online sessions, posters, oral presentations and featured projects.

th Tuesday Tuesday17 17thMay May

14.00 to 16.00 pm (CET) • EU Funded Projects Chaired by Professors Sheila Payne and Richard Harding • Lucy Coombes – C-POS study

Thursday 19th May • 11.00 to 11.50 am (CET) • Hannah Scott, The Impact of COVID-19 on Palliative Care for Children within the UK • OA05:04 • 14.00 to 14.50 pm (CET) • Katherine Sleeman, Palliative Care in the UK During the COVID-19 Pandemic: Provision, Policy and Practice • INV07 • 18.00 to 18.50 pm (CET) • Fei Fei, Symptom Clusters, Associated Factors and Health-Related Quality of Life in Patients with Chronic Obstructive Pulmonary Disease: A Structural Equation Modelling Analysis • OA08:02

Friday 20th May •

11.00 - 11.50 (CET) • • • •

Lucy Coombes, Comprehensibility, Comprehensiveness and Acceptability of a Novel Paediatric Palliative Care Outcome Measure: A Cognitive Interview Study with Children and Families OA11:01 Katherine Sleeman, Provision of palliative and end-of-life care in care homes during the COVID-19 pandemic: a mixed methods study designed for policy impact (CovPall_CareHomes) OA09:01


Cicely Saunders Institute

Posters •

A Delphi study to understand the most important components of out-of-hours community care for patients approaching the end of life and their family carers Joanna Goodrich1, Lydia Tutt1 , Alice M Firth1 , Fliss EM Murtagh2 , Catherine J Evans1 , Richard Harding1 P01-02

How to integrate palliative care within primary healthcare- perspectives of patients with serious illnesses, their family caregivers and primary healthcare professionals in Nigeria O.A. Afolabi1 , K. Nkhoma1 , O. Soyannwo2 , A. Aje3 , A. Ogunniyi3 , R. Harding1 , M. Maddocks1 P01-06

A theory of change for an integrated primary palliative care intervention for patients with serious illnesses in Nigeria O.A. Afolabi1 , K. Nkhoma1 , O. Soyannwo2 , M. Maddocks1 P01-07

Supporting recovery and anticipating nearness of end of life for older adults with frailty and multimorbidity requiring intermediate inpatient care between hospital and home; a feasibility evaluation Catherine J Evans1 2 India Tunnard1 Rebecca Wilson1 Deokhee Yi1 Clare Ellis-Smith1 Matthew Maddocks1 Irene J Higginson1 P01-22

Triggered chain reaction: The meanings of symptom clusters for patients with chronic obstructive pulmonary d isease: A cross-sectional qualitative study Fei Fei 1,2 , Richard J Siegert3 , Xiaohan Zhang2 and Jonathan Koffman1 P02-16

Enabling children and young people to take patient and public involvement roles in paediatric palliative care research Lucy Coombes1, Anna Roach1, Deirdre Leyden2, Hannah Scott,1 Daney Harðardóttir1, Debbie Braybrook1, Clare EllisSmith1, Katherine Bristowe1 and Richard Harding1, on behalf of C-POS P02-35

Challenges and incentives for integrating person-centred outcome measures into routine paediatric palliative care: health, social care and commissioner perspectives Hannah Scott1, Lucy Coombes1, Debbie Braybrook1, Anna Roach1, Daney Harðardóttir1, Katherine Bristowe1, Clare EllisSmith1, Lizzie Chambers2, Myra Bluebond-Langner3, Bobbie Farsides4, Fliss Murtagh5, Richard Harding1, on behalf of C-POS P02-37

Mechanisms and contextual influences on the implementation of advance care planning for older people in long-term care facilities: a realist review Yuxin Zhou1, Ariel Wang2, Clare Ellis-Smith1, Debbie Braybrook1, Richard Harding1 P03-34

Family involvement in advance care planning for people living with advanced cancer: a mixedmethods systematic review Megumi Kishino1, Clare Ellis-Smith1, Oladayo Afolabi1, Jonathan Koffman2 P03-37

The acceptability and effectiveness of eHealth interventions to support assessment and decision making for people with dementia living in care homes: A systematic review Tunnard I1 , Gillam J1 , Vickerstaff V2 , Harvey C1 , Davies N2 , Ellis-Smith C1 & Evans CJ1 P06:15


Cicely Saunders Institute

Events CSI Open Seminar: Children with Life-limiting Conditions - what do the data tell us? Professor Lorna Fraser Wednesday 18th May, 16.00 – 17.00 (BST) Register now

MSc in palliative Care Virtual Open Day Thursday 19th May, 12.00 – 13.00 (BST) The MSc programme at the Cicely Saunders Institute, run in collaboration with St Christopher’s Hospice, will be hosting an exciting online event for those interested in pursuing postgraduate taught studies for September 2022. Dr Clare Ellis-Smith, the MSc Course Director, will be presenting and joined by our MSc Alumni to discuss their experience about the course. Interested? Register here:

CSI Open Seminar: Is rehabilitation really feasible in the palliative setting and why is it needed? Introducing the ENeRgy Trial- a randomised controlled trial of an Exercise and Nutritional Rehabilitation programme for people living with incurable cancer. Dr Charlie Hall Wednesday 22nd June, 16.00 – 17.00 (BST) Register now.

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