CONTENTS
Newly Diagnosed? You Are Not Alone
2
The Children’s Tumor Foundation
4
NF Basics 5 How Does Someone Get NF1?
7
How Is the Diagnosis Made?
8
What Are the Possible Symptoms of NF1?
10
Medical Management of NF1
11
Sharing the News 13 Sample Message to Friends and Family
14
Potential Learning Challenges Associated with NF1 15 Insurance Coverage for Neurofibromatosis
17
Resources 18