2024
(SWN),
(
-SWN),
type
Children’s Tumor Foundation
The Children’s Tumor Foundation (CTF) is the drug discovery engine for NF. Everything we do is to bring treatments to patients as we work toward a cure. By connecting patients, doctors, scientists, and pharma, we drive treatments, advance care, and deliver results for millions affected by neurofibromatosis or schwannomatosis. Our patient-first collaborative approach accelerates drug development and brings life-changing therapies to patients faster –driven by our mission to end NF.
Our mission
Drive research, expand knowledge, and advance care for the NF community.
Our vision End NF.
and expertise to help strengthen CTF’s data-driven decision-making and amplify our impact.
CTF Chief Executive Officer Annette Bakker, PhD, speaking with American Airlines employees, who generously contributed their time
Dear friends,
We’re pleased to share the Children’s Tumor Foundation 2024 Annual Report, which serves as a companion to our Impact Report on research and scientific progress, shared earlier this year. While that report focused on the breakthroughs driving our mission forward, this one highlights the people, partnerships, and progress that make it all possible.
2024 was marked by diverse successes for both NF1 and NF2-SWN. The INTUITT-NF2 trial data on brigatinib was published in the New England Journal of Medicine, validating a treatment pathway first launched through our Synodos platform—an approach made possible by your support. Your investment in the highly promising AI-discovered treatment from Healx received FDA Fast Track designation and has already dosed its first patient. In February 2025, building on the momentum from last year, mirdametinib became the second MEK inhibitor approved, and the first drug ever approved by the FDA specifically for adults with NF1. Adding to this milestone, SpringWorks Therapeutics, the company behind mirdametinib, was acquired by Merck KGaA for $3.4 billion, signaling strong confidence from a global pharmaceutical leader in the future of NF treatments.
These achievements are not isolated events, they are the outcome of your investments in the construction of a pipeline that fuels discoveries and turns them into treatments. One built on years of donor-powered impact investments in the best science and the perseverance of the global NF community.
But the true measure of our success isn’t found only in data—it’s in the lives changed. Every new clinical trial, every treatment milestone, is about more than medicine. It’s about giving hope to the children, parents, and adults navigating life with NF. These NF Heroes are at the heart of our mission, and at the center of everything you help make possible.
In 2024, you stood with them. You gave, you advocated, and you expanded our reach. Because of you, CTF is not only advancing research, it’s building a movement grounded in compassion, innovation, and community.
We are especially grateful for the partnerships that reinforce our infrastructure behind the scenes. Volunteer leaders from American Airlines, for example, generously contributed their time and expertise on Charity Day to help us strengthen our data collection and analysis. Our thanks to OUTFRONT Media and Lamar Advertising for building visibility and awareness for NF across the country—from Times Square to towns nationwide—with bold campaigns that brought NF to the forefront.
Together, we’ve built a powerful engine for progress. This is not a moment of chance—it’s a moment of choice. The science is ready. The systems are in place. The community is globally united. With your continued investment, we will deliver on the promise we’ve made to every family affected by NF.
Thank you for your trust, your generosity, and your belief in what’s possible.
With heartfelt gratitude,
Annette Bakker, PhD Chief Executive Officer Children’s Tumor Foundation
The Impact of Your Donations
This snapshot of impact complements the more in-depth Children’s Tumor Foundation 2024 Impact Report on research and scientific progress, released earlier this year.
First FDA-Approved Treatment for NF1: Koselugo
CTF’s research investment proved that MEK inhibitors shrink NF tumors. We spearheaded the first-ever FDA session on NF, building critical support for FDA approval.
Second NF1 Treatment Approved: Gomekli
CTF identified the potential of mirdametinib to be repositioned for NF1 and facilitated its transfer from Pfizer to SpringWorks, supporting its development with critical NF expertise and patient recruitment.
Topical Treatment for cNF: NFX-179
CTF’s impact investment could soon lead to a gel for cutaneous neurofibroma (cNF) skin tumors.
Breakthrough for NF2-SWN: Brigatinib
CTF’s team uncovered and fast-tracked this potential treatment in the first NF platform clinical trial, which is showing great promise.
First AI-Driven NF Drug: HLX-1502
CTF’s investment accelerates the development of Healx’s drug, which has been granted Fast Track designation by the FDA.
First NF1 Biomarker Study
CTF-funded blood test demonstrates potential to detect NF1 tumors before they become malignant.
Triple the Number of Clinical Trials
CTF’s leadership and research funding have expanded the NF field, boosting clinical trials from 21 a decade ago to 68 in 2024, unlocking new possibilities for treatment and care.
20+ Companies in the NF Space
CTF catalyzed unprecedented interest in NF, transforming a onceoverlooked field into a hub that now attracts over 20 pharmaceutical and biotech companies.
1,000+ Experts at the NF Conference
Organized and led by CTF, this ‘must-attend’ global gathering for NF research drives innovation and collaboration among scientists, clinicians, and industry leaders.
NF Clinic Network: 20,000 Patients Annually
CTF established the NF Clinic Network to ensure access to high-quality NF care, now spanning over 70 locations across North America.
For more scientific detail, pipeline updates, and progress across all forms of NF, read our 2024 Impact Report at ctf.org/impact, or scan the code below with your mobile phone.
This progress is powered by you.
CTF CEO Annette Bakker, PhD, with 2024 von Recklinghausen Award winner Rosalie Ferner, MD
NF Conference
The 2024 Global NF Conference, held June 20–25 in Brussels, Belgium, marked a powerful moment for the international NF community. Hosted by CTF Europe and organized by the Children’s Tumor Foundation and the European NF Group, this premier scientific gathering brought together approximately 1,000 researchers, clinicians, advocates, industry representatives and more, from 43 countries—37% of whom were attending for the very first time.
A special highlight of the conference was the presentation of the Children’s Tumor Foundation’s prestigious Friedrich von Recklinghausen Award, which honors individuals who have made significant contributions to NF1 or schwannomatosis research and care. This year’s recipient was Professor Rosalie Ferner, MD, consultant neurologist at Guy’s and St. Thomas’ NHS Foundation Trust in London. A lifelong advocate for those affected by NF, Dr. Ferner’s remarkable career has been defined by compassionate care, groundbreaking research, and unwavering dedication to the NF community.
Learn more about the work presented at the NF Conference at ctf.org/nfconference.
Advocacy
CTF’s advocacy efforts have delivered more than $400 million in federal funding for NF research.
CTF ensures that smart policy and strong science work hand in hand to accelerate treatments for NF. Our advocacy has built one of the most effective public–private models in rare disease, aligning taxpayer investment with donor contributions to drive results.
In FY 2024, CTF’s leadership helped secure $25 million in federal funding through the Congressionally Directed Medical Research Programs (CDMRP) Neurofibromatosis Research Program, fueling critical NF research and clinical trials nationwide.
When that funding was eliminated in FY 2025, CTF rapidly mobilized the NF coalition and launched an aggressive push for full restoration in FY 2026. Our strategy spans direct engagement with Congress and federal agencies, collaboration with NF and rare disease partners, national media outreach, and sustained activation of our community’s most powerful advocates — those living with NF and their families.
This is what leadership looks like: NF isn’t just on the radar in Washington, it’s front and center, and CTF is making sure it stays there.
Sustaining Hope
NF Summit
The Children’s Tumor Foundation brought the NF community together in powerful and meaningful ways. The 2024 NF Summit in San Antonio, Texas, was a vibrant and inclusive gathering for individuals and families affected by NF. Evolving from more than a decade of educational and volunteer events, the Summit featured expert speakers on topics like chronic pain, hearing loss, and upcoming clinical trials. We proudly honored community members, clinicians, researchers, and partners with the Make NF Visible Community Awards—recognizing their extraordinary efforts to raise awareness and champion the NF cause.
Patient Engagement: CTF Engage
CTF Engage is the Foundation’s patient engagement initiative, designed to prepare individuals with NF and their families to participate as advocates in NF research. Patient representatives are trained to work with stakeholders such as researchers, the pharmaceutical industry, and the U.S. Food and Drug Administration to add their perspectives during all phases of the research process.
NF Registry
The NF Registry is a powerful engine behind faster research, smarter care, and better outcomes. With over 11,000 participants from around the world, and growing, it connects people living with NF to clinical trials, expert care, and cutting-edge studies that could change their future.
Created and managed by CTF, the Registry is the largest patient-entered NF database in the world. It gives patients a direct way to accelerate progress, while providing researchers, clinicians, and pharmaceutical companies with the insights and access they need to solve NF’s toughest challenges. Now available in multiple languages, the Registry is expanding global participation and making sure every voice can help shape the path forward.
NF Clinic Network (NFCN)
NF Clinic Network (NFCN), established by the Foundation to improve and standardize care, expanded to more than 70 clinics across the U.S. and Canada. These clinics serve approximately 20,000 patients each year and are selected based on their NF expertise, multidisciplinary care, commitment to research, and alignment with CTF’s mission. Together, the NF Registry and Clinic Network represent a powerful bridge between patients and progress—bringing research into real-world care, and care into the heart of research.
Spreading Awareness
Awareness is where progress begins. For many families, CTF is the first place they turn after diagnosis, and the trusted voice they stay with throughout their NF journey. From accessible educational resources to global campaigns, we ensure no one faces NF alone.
That journey isn’t limited to patients. Awareness brings researchers into the field, connects clinicians to new insights, and draws biotech and pharma toward new opportunities. It’s how discovery starts, partnerships grow, and treatments move forward.
By elevating the science, patient stories, and the urgency of NF across all media, digital platforms, and public spaces, we drive research forward, expand clinical possibilities, and bring NF to the center of the medical conversation.
CTF shines a light on NF every day, turning awareness into action. Each year, landmarks around the world light up in blue and green to bring NF into the public eye on World NF Day.
OUTFRONT Media took NF awareness to the heart of Times Square, igniting a bold, nationwide campaign that made NF impossible to ignore, from city centers to skylines across the country.
NF isn’t rare when you make it visible. Patient voices drive the research that leads to treatments.
Lamar Advertising spread the NF message across the nation, powering a coast-to-coast PSA campaign that captured attention in cities big and small.
National Ambassador Leanna Scaglione
At the 2024 Children’s Tumor Foundation National Gala, we proudly named Leanna Scaglione as our 2025 National NF Ambassador—an honor awarded to an individual who exemplifies courage, resilience, and unwavering dedication to raising awareness for NF.
Leanna’s journey with NF2-related schwannomatosis began at age 16, when a suspected dance injury revealed a spinal tumor that required two major surgeries and left her unable to walk. Since then, she has faced NF head-on, undergoing seven surgeries and the removal of thirteen tumors, all while navigating the challenges of hearing loss, facial paralysis, and the emotional toll that can come with them. Through it all, Leanna has shown extraordinary strength and determination.
In 2024, Leanna brought her passion for advocacy and athletics to the global stage. A proud member of the NF Endurance Team, her achievements include the London, Chicago, Berlin, and New York City marathons—each step a powerful symbol of what’s possible in the face of adversity. She turned her love of running into a platform for awareness, connection, and hope.
As NF Ambassador, Leanna has used her voice to uplift others and shine a spotlight on the NF community. Through public speaking, social media, and heartfelt storytelling, she has created space for others to feel seen, heard, and supported. Her impact has been nothing short of inspiring.
We are deeply grateful to Leanna for the strength, authenticity, and joy she brings to the NF community. Her ambassadorship is a reminder that while NF presents real challenges, it cannot stop the incredible individuals who rise above them every day.
Raising Funds
Special Events
The Children’s Tumor Foundation hosts a wide array of special events, collaborating with volunteer committees across the country to organize unforgettable experiences to support NF research. Meanwhile, through our “Fight NF Your Way” program, volunteers receive important tools and resources that help them create unique fundraising activities and community-building events.
Shine a Light NF Walk
Shine a Light NF Walk is a national, volunteer-led fundraising program that brings communities together in cities across the country to support NF families and advance research. These familyfriendly events raise critical funds and awareness while honoring the strength of those living with NF. Local teams, neighbors, and supporters come out to walk, connect, and show up for the cause, with activities, music, and plenty of heart from start to finish.
Cupid’s Undie Run
Cupid’s Undie Run is a mile(ish) dash through the cold in your undies, costumes, or whatever gets a laugh, to raise awareness and funds for NF research. Part fun-run, part party, and 100% for the CTF cause, this unforgettable event rallies thousands each year to show up and support the mission. It’s outrageous, it’s volunteerdriven, and it’s raised millions for CTFfunded research—all while keeping NF front and center.
NF Endurance
The NF Endurance Team is a global community of athletes, advocates, and everyday champions pushing their limits to accelerate NF research. From 5Ks to marathons, triathlons to trail hikes, team members race, ride, and rally for one purpose: to help end NF. Inspired by the strength of those living with these conditions (our NF Heroes) every mile becomes a statement of solidarity, and every finish line moves us closer to treatments and cures.
Change in Net Assets
WithThanks
The Children’s Tumor Foundation is grateful for the continued support of the many individuals, corporations, foundations, and communities who have joined us in the fight against NF. Together, we are making enormous progress. Thank you for your partnership.
Architects of Impact
DISTINGUISHED BENEFACTORS
$1,000,000+
Anonymous
Jennifer & Daniel Gilbert
Frank & Shelley Haughton NFX
Mark & Michelle Oppenheimer
Distinguished Donors
FOUNDERS’ CIRCLE
$100,000 - $499,999
Alexion AstraZeneca Rare Disease
Anonymous
Bob & Kitty Bunn Family Fund of Oregon Community Foundation
CureNFwithJack
RB & Susan Harrison
Hauske Family Foundation, Inc.
The Estate of Rick L. Horner
Richard Horvitz & Erica Hartman-Horvitz
Steven & Alyson McKenzie
Kevin & Elizabeth McMeen
Modern Giving Foundation
John & Beth Morris
Michael & Kelly Peterson
Melissa Skyer
Snipes Family Charitable Fund
SpringWorks Therapeutics, Inc.
Stuart Suna
FELLOWS
$50,000-$99,999
Alexander Roberts MPNST
Family Fund
Randie Judkins
Richard & Leslie Kates
The Kettering Family Foundation
Lacroix LLC
Love, Tito’s Vicki Match Suna
Myriad Canada
Diane & Jeffrey Owens
Penny’s Flight Foundation
Cristin & Ross Rhinehart
Dong & Lisa Shen
Judith & Philip Shwachman
Timothy & Jennifer Soliman
Richard Soll
Patricia Spencer
Taub Family Fund
Roland & Nicole Thoms
George Thuronyi
Andrew Trigg & Colleen Gurda Trigg
Emily & Nicholas Tseffos
Wonder Fund
Robert & Terry Yanowski
CHAMPIONS
$25,000-$49,999
Jason Ackerman & Jessica Smagler
Elaine & Edward Altman
Anonymous
Ares Management
Arvest Foundation
PRESIDENT’S COUNCIL
$500,000 - $999,999
Sally Gottesman
Laurée and Corinne Moffett
Rob Brainin & Nicola Kean
Barbi Carignan
Eric & Mia Colodne
Jason Colodne & Colbeck
Capital Management
Cromwell Harbor Supporting Foundation
Derfner Foundation
Dove Givings Foundation
Kara & Alex Elsik
EOG Resources, Inc.
George & Lara Gaine
Amanda & Joseph Gentile
Gabriel Groisman & Lisa Falic-Groisman
Rush & Linda Harding
Laura Heck
Christopher & Tonya Hoffmann
Jerry & Maureen Hunter
John C. Kish Foundation
Kevin & Maureen Hussey
Rick & Amanda Jaffa
Frances Kallman
Brad Hall & Julia LouisDreyfus Hall
Stephen & Eve Milstein
Shahan & Erin Mohideen
Susie & Charles Morgan
John Nelson
Laura & Eddie Pells
Recursion Pharmaceuticals
Mark & Jacqueline Reese
Kim & Brian Robinson
Mitchell & Liz Rodbell
Scott & Amanda Rudnick
Carolyn Setlow & Family
Catherine & Brian Shaw
The Spiegel Family Foundation
Stutts - Veeh Foundation
Charlie & Kimberly Thyberg
Jalsa Urubshurow
Angela & Donn Vanderploeg
Clara & Scott Wilpon
Debbie & Richard Wilpon
Fred & Judith Wilpon
Zisson Foundation
ADVOCATES
$10,000-$24,999
95sx Hit Music Now
Brian Agboh & Jeannette Rizzi
Daniel & Robin Altman
Ann & Bill Steffenhagen Foundation
Anonymous
Jenny & Mike Antonaccio
Marie Artim
Audacy Cleveland
Michael & Ali Ball
Ashton Banks
Michael & Susie Barnello
Emily & Jeff Barry
Simone
Therapeutics, Inc.
Kristy & Ryan Nobles
Nomad Framing, LLC
Nomadic Expeditions, Inc.
John & Susan O’Donnell
Karen & Dennis O’Keefe
Sarah & Michael Orlando Daphne Osei The Pappas Family Charitable Fund Emily & Matthew Parker
Rachel & Dustin Patterson
Gayle & Roger Peper
Michael Peper & Tandy Wolters
Nancy Pollard
Jeff & Rubi Powl
Eddie Purtell
Raymond and Edna Gumm
Family Foundation
Amy Reay
W.B. Robbins
Bruce & Joy Roberts
Kurt & Judith Ross RS Electric
Kenneth Rudd Michael Saidi Jess & Brett Samblanet
Catherine Sankey
Kelly Sassa Bill Schaninger
John & Robin Scheuer
Jennifer Schimmel
Brad & Jen Schneider
Carol Schwab
Ken Shigley
Greg & Laureen Sills
Sissy’s Log Cabin
Perrie Smith
Solder True Life Foundation
Doug & Riley Soulliere
Jonathan Staver & Rachel Winer
Lauren & Jacob Stearns
Stephen & Mary Birch Foundation, Inc.
Alan & Joanne Suna
Tyler & Alicia Tegtmeyer
Paul Thuriot
Megan Thynge
Stephen & Stephanie Timmons
Tiny Foundation
Rachel Tiven & Seth Marnin
Charlie & Kathy Toppino
Jeff & Sarah Tucker
TZ Basketball One More Club
VEGA Americas, Inc.
Nate Walker
Allisha & Kyle Watkins
Sarah & David Wengel
Michael & Catherine Williams
The Wireless Zone Foundation for Giving, Inc.
Anna & Robert Witzig
Chip & Barbara Youlden
Don & Janet Zimmerman
Brandon & Kelley Zureick
Donors
SUPPORTERS
$5,000-$9,999
10Pearls
Negar & Fathieh Adib
Diane & Fumi Akutagawa
Monica & Christian
Alexander
Alison Cooper
Charitable Fund
Alvin H. Baum Family Fund
Anglin Zellers Family Fund
Anonymous
Jonathan Ansel
Aspen Insurance US Services
B the Difference
Liz & Jordan Bamesberger
Rebecca Barr
BechtCares
Michael & Shaun Beckish
Belkin Burden Wenig & Goldman, LLP
Dorothy & Daniel Bell
Tiffany Benitez &
JW Palmer
Steven & Kathy Benner
Dale & Jane Berg
Beta Sigma Phi
Marty & Paula
Bezbatchenko
Biotechnology Innovation Organization (BIO)
Geoffrey Bonis
Kristen & Austin Booth
Gary Boris
Lauren & Jeremy Boswell
Jack Brainin
Laurie & Andrew Brotman
Brown Foundation
Hayley & Dominic Brown
Amy Butler
Catherine & Terry Cammon
Maria Campilonga
Scott & Jackie Cardenas
Brian Cheng
Jane Chiang Lin
Christopher & Kirsten Beda
Donor Advised Fund
Carolanne Clay
Christopher & Morgan
Clayton
Ernie Cline
Michael & Jayne Cohill
Tim & Stacy Compton
Kenneth Cooper
Lee Cox
Ethan & Anne Cramer
Naomi Cuka
Greg & Katherine Dahlberg
Dalan Management
Jeffrey & Wendy Dankey
Mark & Deanna Daus
Timothy Davis
Dean Family Foundation
Matthew Diamond
Mary Disegi
Doug and Julie Moshofsky
Donor Advised Fund
Sheila & Tim Drevyanko
The Drexi Fund
Jeremy Dykes
Mark Ebel & Catherine Laskey
Kara & Matt Eck
eGames.com Holdings
Ellie & David Eliopulos
Ernst & Young Foundation
Peter Feinberg
Steven & Jane Fink
Rose Fiscella & John Novello
Paul & Sarah Fisch
Jordan Fisher
Mark Fowler & Jessica Kaplan
Frank D. Hickingbotham
Foundation Trust
Wendy Fraulo
Misako Fujisaki
Geoff & Sherry Galloway
Clifford Gelbard
Daniel & Ruth Georgi
Margery Gering Feinberg
Tamara Gineo
Glen Bruemmer Family Foundation
Globalogix Inc.
Stuart & Marcey Goldner
Golfberg Kohn Foundation
Zach & Belle Gratton
Judit Groisman
Nick & Ashley Groneck
Lauren & Brandon Gross
Gary & Cari Gross
Harley & Rochelle Gross
Lisa & Daniel Gutierrez
Kathryn Hachigian
Robyn Hall
Sharon & Jonathan Hanzel
Robbin Harper
Sarah Hart
Aaron & Brandi Hauser
Matthew & Nora Hay
Susan Heil
Todd Henson
Floyd Hernandez
Edmond Hurst
Insperity
Margaret Ippolito
Jack and Marjorie
Schillinger Family Foundation
James and Shannon
Warder Charitable Fund
John & Sally Jarboe
JARC Memorial Fund
Jersey Mike’s
John & Nellie Bastien
Memorial Foundation
John and Lisa Walker
Family Fund
John Deere Foundation
Sarah Jordan & Suresh
Nagappan
Zev & Melissa Jungjareon
Brandon & Jessica Karasek
Bonnie Kaur
Colin Keller
Steve & Judy Kendra
Aleksandra Kepska
John Kiczek & Christine
Seuffert
Kiki and Lulu Co
Scott & Michelle Kosinski
Krystin Krasnowski
Nikki & Mike Kunkel
William & Denise Lagory
Landers Auto Group
TJ & Mandy Lawhon
Miriah LaZarus
Benjamin Leathers & Kathleen Hatcher
Mike Lee
Lexicon, Inc.
John Ligon
Peter & Angela Lindeback
Ken Linkous
Lori Linkous
Little Heroes of North
Georgia
Anna Livaccari
Camille Lokuta
Kimberly & Jesse Long
Lauren Lopez
Robert Lopez
Steve & Cathy Lorberbaum
Debra Lynch-Sorber
Gregg & Linda MacMillan
Mary Beth Maly
Jason & Andrea Marian
Marsha and Marty Martin
Family Foundation
Patricia Marshall
David & Liz Martin
Tom Martindale
Bailey Mateer
James & Natalie Mateos
Mays, Byrd & O’Guinn, PLLC
Brenna & Daniel McConnell
Daniel McGann
Ted & Jeanette McGee
Miranda & Rod McManus
Kristin Meek
Carolyn Meyer-Tolliver
James & Cathy Moore
Michael Morris & John Mason Morris
Dan & Anja Moss
Chris & Caroline Moulsdale
Muriel F. Siebert Foundation
Nabholz Construction Services
Joan & Harvey Newman
David & Sara Nimmons
Amy & Alan Nordstrom
Cynthia Nuara
Luke & Kim O’Gary
Dustin & Jill Ostrom
Caitlin & Theo Ottesen
Deb Pageau
Katie Pancio
Patrice Pancza
Esther Silver Parker
Robert & Kathryn Paul
Emilia Pavia
The PBJ Memorial Fund For Creative Gifting
Evangelos & Min Pefanis
Melissa & Sean Penfold
Rachel & Aron Persons
Erica & Ron Petras
Scott Plotkin & Candace
Lun Plotkin
John & Misty Plunkard
Patrick Powers
Mike & Cory Powl
Amanda & Carl Pregler
R. David Dale Trust
R. Simpson Gifting Fund
Meera P Rajagopalan
Rancho Santa Fe Glass, LLC
David & Staci Raymond
Kurt Read
Vivek & Katie Reddy
Stephanie & Matthew Reeve
Dennis & Shelly Reeve
Mike & Crystal Rink
Tiffany & Daniel Robinson
Elizabeth Roberts
Jeremy & Pamela Roma
Allan Rubenstein & Carole Postal
Jennifer Rubert
Edward Russo
Kelli Sack
Amy & Gerard Sapienza
Saracen Casino Resort
David & Linda Sassa
Priscilla Saunders
Leanna Scaglione
Patrick Scheuck
David Schippnick
Natalie & David Schneider
Mary Scianna
Sei Bella Med Spa
The Shopping Center Group, LLC
Thomas Silvia & Shannon Chandley
Laura Sinacori
Arjun Sirrah
Mark & Rachel Smith
Connie & Peter Sorman
Stavros Niarchos Foundation
Stella & Charles Guttman Foundation, Inc.
Steven & Lottie Walker
Family Foundation
Judith & James Stillwell
Carl Stutts
Annabelle Swift
Patricia Teixeira Wyrwoll
Julie Tibbets
Paul & Claudia Timko
Donna & David Tipton
Denise & Jaime Torres
Trotter Foundation
Anne Trussell & Mike Brooks
The Tudor Foundation, Inc.
Tyson
Todd & Lauren Ungar
Vogel Schwartz Foundation, Inc.
Joel Wallace
Walmart
Priscilla Watkins
Katelyn Watkins
Pam Webster
Matthew Wetzel
Deke Whitbeck
Matthew Whitlock
Robert & Pamela Willis
Daniel Wilpon
Ross & Kathy Wilson
Virginia Wladecki
Abby & David Wolff
Timothy & Sandy Wuliger
James & Megan Wyse
Satish Yalamanchili
The Yellow Boulder Foundation
Alex & Kristin Zisson
CTF Lifetime Giving
Lifetime recognition for donors whose support has reached $1 million or more. Their legacy advances the mission for generations to come, and fuels groundbreaking research and lasting change.
Alexion AstraZeneca Rare Disease
Anonymous
Bernard F. and Alva B. Gimbel Foundation
Flashes of Hope
Estate of Michael J. Ahern
The Estate of Virginia Cartwright
Falic Family Foundation Inc.
Jennifer & Daniel Gilbert
Sally Gottesman
Erica Hartman-Horvitz and Richard Horvitz
Frank and Shelley Haughton
J. Aron Charitable Foundation
Laurée and Corinne Moffett
NFX
NF Team Marathon Program
The Nicholas J. and Anna K. Bouras Foundation Inc.
Mark Oppenheimer and Michelle Oppenheimer
John Risner and Sharon Parente
Stuart Suna
Wonder Fund
CTF Board Alumni
Christer Agell*
Peter Aron*
Lee Babiss*
Robert Bernat
Louis Berra
Laura Bona
Amy Boulas
Rob Brainin
Bill Brooks
Colin Bryar
John Catsimatidis
Joel Cohen
Lou Congelio*
Lynne Courtemanche Shapiro*
Marian Crisci
David Cross
Paula Dickerson
Mady Donoff
Suzanne Earle
Mark Ebel
Maria Escandon
Kennetha
Esters-Strange
Leslie Ann Fox
Patricia Francy
Aram Fuchs
Jake Garn
Dan Gilbert
Dolores Goldfinger
John Golfinos
Daniel Graeff
Anita Gribben
James Gusella
Brendan Hanrahan
Carol Harrison
Kalagher
Susan Harvey
Matt Hay
Kimberly Higgins Mays
Joel Hirschtritt
Catherine Jaeger
Richard Jaffa
Jesse Jenner
Bruce Judson
Alfred Kahn
Michael Katz
Ben Kohnle
Antoinette Konski
Bruce Korf
Kirstin Kurlander
Joan Kushner
Chad Leathers
Marshall Loeb
Stephanie Longtin
Michael Lucas
Jill Markland
Rosemary Marks Durant
John McCarthy
Juli Middlekauff
Doretta Milligan
Mark Mooney
Irene Moss
Michie O’Day
Lesley Oslica
Joanne Pastel
Laura Perfetti
Michael Peterson
Denise Pitzman
Scott Plotkin
Jason Pontin
Jane Pugh*
Jessica Quintana
Harold Ramis*
Terri Rawson
John Risner
Alan Robbins*
Allan Rubenstein
Robert Schaffer
Doris Schnuck
Bernd Seizinger
Carolyn Setlow
Kyle Shannon
Colby Shapleigh
Tara Skirzenski
Mary Lou Smith
Connie Sorman
Edward Spiegel
Yvette Spirito
Ed Stern
Susan Stewart
Stuart Suna
William Tarbart
Karl Thomson
Rachel Tiven
Lisa Trygg
Steven Utley
Dave Viskochil
Nate Walker
Margaret Wallace
Sally Wallner
Farah Walters
Bonnie Young
*Denotes deceased
NF Legacy Society
As a supporter and friend of the Children’s Tumor Foundation, you have been vital in building us up from a grassroots group with just a few members into the leading organization we are today, fully committed to finding treatments for all types of NF. Make no mistake about it — the progress that has been made in the fight against NF is because of people like you, who are working to improve the lives of those with NF. It is a legacy of which you can be proud.
Our vision is to end NF. We owe it to future generations of NF patients and families to see that vision become a reality. And as long as there is the Children’s Tumor Foundation, there will always be an advocate fighting hard for the NF community.
By making a special legacy gift to the Children’sTumor Foundation, you will play an important role in ensuring that this work continues. Your planned gift is an investment in the long-term future of the organization, ensuring that CTF will continue to lead the way in the fight to end NF
The Children’sTumor Foundation NF Legacy Society consists of individuals who have taken the extra initiative to ensure the future of NF research by including the Children’s Tumor Foundation in their estate plans.
To learn more about leaving a legacy and making a planned gift, please visit freewill.com/CTF, contact the Foundation at donorrelations@ctf.org, or call us directly at 1-800-323-7938.
Donors: NF LEGACY SOCIETY
Ali & Melinda Adib
Anonymous Patricia Bacon
Eileen Wynne Ball
Michael & Lindsey Barnett
Barrese Brian & Kelly Behrens J. Michael & Joy Blankenship
Christopher & Jessica Bragg
Robert Brainin & Nicola Kean
Angela Buffkin
John & Carole Cardiello
Gene Casciari, Sr.
Sergio & Danielle Chavez
Geoffrey Cohen
Jeffrey & Wendy Dankey
Robert DeVinney
Bonnie Eisenklam
David & Sarah Eisenklam
Tracy Galloway
Joseph & Taniya Goshert-Hossain
Patricia Goworek
Robert & Shawn Grabinski
Richard Horvitz & Erica Hartman-Horvitz
John Heropoulos & Richard Crook
Allan & Jacqueline Hochschild
Richard & Marion Hodges
Reid Horovitz & Marlene Hollander
Anna Hunter
Richard & Amanda Jaffa
Ronald Jurgens
Ralph & Louise Kadden
Howard Kichler
David & Addie Kirchner
Daniel & Stella Lentz
Kristin Lidinsky
Seth Marnin & Rachel Tiven
Clayton Mellina
Clyde & Marcia Miller
Anthony Mixon
Charles & Anita Newberg
Adrienne Nguyen
David & Heather Niles
Oliver & Helen Picher
Gordon & Denise Pitzman
Derek Raymond
Susan Reed
Suzanne Riccardi
Brian & Melanie Rickmann
Kenneth Rudd
Susan Salpeter
Jerleen Schlesser
Kenneth Shigley
Solange Skyer
Diane Slater
Peter & Connie Sorman
Randall Stanicky
Stuart Suna
Paul & Claudia Timko
Carolyn Meyer-Tolliver
Hank Zureick
Board of Directors
Gabriel Groisman, Chair
Liz Rodbell, Vice Chair
RB Harrison, Treasurer
Simone Manso, Secretary
Tracy Galloway, Chair Emeritus
Jaishri Blakeley, MD
Sally Gottesman
Laura Grannemann
Colleen Gurda Trigg
Frank Haughton
Kelly Jones
Montse Montaner Picart
John Morris
Roger-Ketcha Ngassam
Mark Oppenheimer
Emily Parker
Kenneth Rudd
Kimberly Snipes
Richard Soll
Vicki Match Suna
Lydia The, PhD
George Thuronyi
Advisory Board Chairs
D. Wade Clapp, MD
Chair, Medical Advisory Committee
Laura Klesse, MD, PhD
Chair, Clinical Care Advisory Board
Lu Le, MD, PhD
Chair, Research Advisory Board
Montse Montaner Picart
Co-Chair, Business Advisory Council
Alex Zisson
Co-Chair, Business Advisory Council
Shannon McNall
Chair, Volunteer Leadership Council
Medical Advisory Committee
D. Wade Clapp, MD, Chair
Jaishri Blakeley, MD
Michael Fisher, MD
Nader Fotouhi, PhD
Aerang Kim, MD, PhD
Bruce Korf, MD, PhD
Lu Le, MD, PhD
Eric Legius, MD, PhD
Andrea McClatchey, PhD
David Miller, MD, PhD
Helen Morrison, PhD
Scott Plotkin, MD, PhD
Edu Serra, PhD
Georg Terstappen, PhD
Dave Viskochil, MD, PhD
Brigitte Widemann, MD
Honorary Directors
Daniel Altman
Linda Halliday Martin
Richard Horvitz
Steve McKenzie
Randall Stanicky
Allan Rubenstein, MD Director of Medical Affairs Emeritus
CTF Europe Board Members
Annette Bakker, PhD, Chair
Sabine Moravi, Vice Chair
Samia Arslane
Magda Chlebus
Nikola Gazdov
Richard Horvitz
Simone Manso
Stuart Suna
Foundation
Staff
Annette Bakker, PhD, Chief Executive Officer
Elizabeth Oliver, Chief of Staff
Michael Marinaccio, Administrative Assistant
Marina Zouaghi, Data Scientist, Business Intelligence
Research and Medical Programs
Dariusz Adamczewski, MD, Managing Director, CTF Europe
Vidya Browder, PhD, Director of Research
Angela Dumadag, Director, Conference & Meeting Logistics
Ledare Finley, Manager, Clinical Programs
Kate Kelts, Director, Patient Education & Engagement
Sarah Lees, Director, Research Education & Engagement
Cindy Lopez, Coordinator, Science Projects
Irene Morganstern, PhD, Director, Preclinical Initiatives
Marco Nievo, PhD, Chief Scientific Officer, CTF Europe
Kara Quaid, Data Science Postdoctoral Researcher, Bioinformatics
Development
Monica Sohn, Chief Growth Officer
Jamie Balhon, Senior Director, Development, Shine a Light Walk & Cupids
Amy Boulas, VP Development, P2P & Field-Based Events
Cassidy Brewer, Senior Manager, Development, Cupid’s
Holly Cheatham, Manager, Development, Cupids
Samantha Chiesa, Manager, Development, Shine a Light Walk
Emily Crabtree, Prospect Research & Portfolio Mgmt Officer
Anna Endsley, Coordinator, Shine a Light NF Walk & Cupids
Aidan Fraser, Prospect Research Coordinator
Barbara Gallagher, Vice President, Individual & Foundation Giving
Lauren Johnston, Manager, Shine a Light NF Walk
Julie Nassisi, Senior Manager, Special Events
Kim Robinson, Major & Planned Giving Officer
Connie Sorman, Major Giving Officer
Rebecca Taylor, Senior Director, Corporate Partnerships, Campaigns & Events
Lydia Vanderloo, Director, Development, NF Endurance
Finance and Operations
Sarah Bourne, Senior VP, Finance and Operations
Rachel Anderson, Senior Director, Data Operations
Jennifer Ching, Director, Human Resources
Brianna Daquino, Staff Accountant
William Johnson, Sr. Salesforce Administrator
Dan McAvoy, Assistant, Operations
Andrew Mendonsa, Jr. Salesforce Administrator
Carey Milligan, Director, Finance
Mary Phelan, Product Coordinator, UX
Paige Schatzman, Coordinator, Gift Processing
Marketing and Communications
Simon Vukelj, Chief Marketing Officer
Rebecca Harris, Director, Public Relations
Alissa Marks, Senior Director, Marketing
Alice Pareti, Manager, Web Content
Susanne Preinfalk, Director, Design
Ryan Sells, Coordinator, Communications
Vanessa Younger, Vice President, Communications
Maribel Zambrana, Manager, Digital Marketing
