magazine www.chasecare.org.uk
Supporting families with life-limited children and teenagers throughout SW London, Surrey and Sussex.
Jess spent the su mme r holid ays cycli ng across Chin a and teaching child ren... ... sh e we nt on to achie ve 3 A’s at A level
Creative thinking, creative learning.
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Contents
Cover picture: Indigo, whose family is supported by CHASE, with CHASE Care Team member Mel. Photo by Russel West (photojournalist)
P5 Welcome P6-7 A Year in Pictures P10-11 Meet two members of the CHASE Community Care Team P14 Millie-May’s Family – From Redhill
P15 P16 P17 P20-21
Tuckwell CHASE Lottery Donation Form Sponsorship Form Rhea’s Family – From Croydon P22-23 Christopher’s, the CHASE children’s hospice
P24 P25 P26
Friends of CHASE Groups, Volunteering & Schools CHASE Challenges & Events Businesses and other ways of supporting CHASE
Gemma from the CHASE Community Care Team with Henah and her mum Deepa at the family’s home in Crawley.
Contact Details CHASE Fundraising Office: Loseley Park, Guildford, Surrey GU3 1HS Tel: 01483 454213 Fax: 01483 454214
www.chasecare.org.uk info@chasecare.org.uk
Christopher’s children’s hospice: Old Portsmouth Road, Artlington, Guildford, Surrey GU3 1LP Tel: 01483 230960 Fax 01483 230961
Registered Charity No. 1042495 A company limited by guarantee No. 2927688 - England Registered Office: The Oriel, Sydenham Road, Guildford, Surrey. GU1 3SR
Publishers: Community Appeal Media Ltd www.camcentral.co.uk Designed by Grapevine Design and Print Tel: 01903 531531
CHASE welcomes your support. Find out more at www.chasecare.org.uk or call 01483 454213
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THE SCHOOL WITH THE BEST PERFORMANCE Hurtwood House has the biggest and best Drama and Media Departments in England, with superb professional facilities. It is also hugely successful academically and has been top of the league table for two of the last four years as the BEST CO-EDUCATIONAL BOARDING SCHOOL IN THE UNITED KINGDOM.
Uniquely, our 300 boarding students join us after GCSE, when they are ready for the fresh challenge of a sixth-form where life is as exciting and stimulating as it is at university. Structured and secure, innovative and dynamic, Hurtwood House is one of England’s most successful and exciting schools.
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FOR FURTHER DETAILS, PLEASE CONTACT: Cosmo Jackson • Hurtwood House • Holmbury St Mary • Dorking • Surrey • RH5 6NU T: 01483 279000 • E: info@hurtwood.net
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Welcome to the new magazine from CHASE hospice care for children. e hope, through the pages of this magazine, to give readers an insight into the vital work that CHASE does in the community throughout South West London, Surrey and Sussex and at its children’s hospice. CHASE hospice care for children gives help and support to families with children and young people who are life-limited – these young people are not expected to live to reach adulthood. CHASE supports the whole family not just the life-limited children and our service is flexible, practical and holistic, with the focus on making every day count. Members of the CHASE community care team are out on the road throughout the year supporting families in their homes
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and communities. At CHASE we believe it is the families who know best when it comes to the care of their child and our aim is to support them, in whatever way is needed. Christopher’s, our children’s hospice is based just outside Guildford and families from across the whole CHASE area come to Christopher’s for a break. Christopher’s provides a home-fromhome environment in a warm and friendly atmosphere – so parents can be parents for a while – not just carers. CHASE takes away the strain of 24 hour care to give families the time to create special memories which can be so valuable for them in the future. Since CHASE was established it has touched the lives of over 700 families – and every year this involves offering support to more than 1200 family members.
CHASE has to raise £4 million a year to ensure its vital service is able to continue and the vast majority of this funding comes from charitable donations and fundraising. There are more families who need our support and we need to ensure none of these families are ever let down. In these uncertain economic times it is more important than ever for people to get involved and help us to fundraise. We are therefore calling on members of the community to help us in any way they can. Thank you.
David King Chief Executive You can get involved in a number of ways: • Raise money through a sponsored race or event (see page 25) • Set up a CHASE Friends Group (see page 24) • Get your workplace involved (see page 26) • Get your school involved (see page 24) • Other ways of Supporting CHASE (see page 26) To keep up to date with the latest CHASE news, sign up for updates at www.chasecare.org.uk/newsletter
Henah being supported at home in Crawley by Jack – who was delighted to be mascot for the day at Surrey County Cricket club
Gemma from the CHASE Community Care Team.
CHASE welcomes your support. Find out more at www.chasecare.org.uk or call 01483 454213
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A year in pictures... January – CHASE takes families ice skating group of children from CHASE hospice care for children enjoyed some ice skating at Hampton Court courtesy of CHASE supporters, Foresters Insurance. CHASE care team member Kylie Quincey went along to take photographs of the event for family scrapbooks. She said: “The families really enjoyed it – even some of the children in wheelchairs went on the ice. It was a lovely day out that the whole family could participate in together and we all had a wonderful time.” Find out more about CHASE families on pages 14 and 20, or visit www.chasecare.org.uk/familystories
A
Anne Marie Rosoman from Weight Watchers (right) with CHASE Fundraising Manager Melanie Hill
Joy goes ice-skating with her dad Stephen
The 42-strong group was joined by Sky News broadcaster and Eggheads quiz host Dermot Murnaghan. Also on the ride was main sponsor and headhunter Jonty Watt of Watt Search and Selection, a City recruitment firm, who had recently suffered
a minor heart attack in training. He recovered well though and was still determined to take part so he did the ride on his rather ancient motorized scooter! Find out more about challenges on p25 or visit www.chasecare.org.uk/challenges
March - Weight Watchers Easter Egg Amnesty benefits CHASE In a bid to avoid the temptation of too many calories over Easter, a local Weight Watchers group held an Easter Egg Amnesty to encourage members to hand over those tempting chocolate treats. Find out more about fundraising on p24 or visit www.chasecare.org.uk/fundraising May – 42 Cyclists arrive in Paris For the third year running Iain Armitage, whose family is supported by CHASE, cycled from London to Paris with a band of plucky riders, raising a total of £230,000.
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CHASE welcomes your support. Find out more at www.chasecare.org.uk or call 01483 454213
Thomas Hunt, Joe Egerton and James Frankis raised £1,500 from their challenge
Eric Clapton guards the wicket. Photo by Russel West (photojournalist)
June - Eric Clapton XI v The Bunburys CHASE Patron Eric Clapton fielded a team of celebrities to play in a celebrity cricket match against The Bunburys, the country’s best known touring team of celebrities, former players and cricket professionals. Eric's team provided much entertainment and action and a huge surprise to spectators when former Rolling Stone Bill Wyman sent Surrey and England player Mark Ramprakash's stumps flying! However, The Bunburys won the day. Find out more about CHASE patrons at www.chasecare.org.uk/patrons
August – Dunsfold Wings and Wheels CHASE had a stall at the Wings and Wheels Airshow and was one of six charities to receive funds from ticket sales, raising £3,500. To find out about the latest events raising funds for CHASE visit www.chasecare.org.uk/events
December – Sensory Garden at Christopher’s gets a make-over Leatherhead construction company Alterspace project-managed a complete makeover of the sensory courtyard at Christopher’s, our children’s hospice, free-of-charge.
September – Old School friends cycle every county in England to raise funds Three friends cycled around all 48 counties of England in just over three weeks. They took pictures of the signs as they entered each new county as proof of their achievement for when they returned to collect sponsorship from friends and family members! Read the latest CHASE news at www.chasecare.org.uk/news
The Red Arrows display at the Wings and Wheels Airshow
Building contractors Alterspace getting into the Christmas Spirit
Specialised equipment for the courtyard, such as fibreoptic lighting, outdoor musical instruments including drums and chimes, and tactile seating cubes, was purchased with funds raised by the Armitage family and the London to Paris cyclists. Find out more about how your business can get involved with CHASE on p26 or go to www.chasecare.org.uk/corporate
CHASE welcomes your support. Find out more at www.chasecare.org.uk or call 01483 454213
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D I S C OV E R
EXPERIENCE
INDULGE
Meet Two Members of the CHASE opposed to being purely a caring role. “There is a high proportion of children who require a specialist, skilled nursing role, for instance requiring a system of feeding through a tube direct into a vein. There are also a number of children with cancer who have complex medical needs.” The job is incredibly rewarding – giving families the opportunity to spend some quality time together by taking away some of the strain. But this can put strain on the Care Team Members themselves, so how does Marina deal with it? “Yes of course I get upset – we all do and yes you will cry with the family but you have to distance yourself as much as you can – without distancing yourself completely. It is difficult to explain but we all have our own ways of protecting ourselves from getting too entrenched in the family’s grief. We have to be there to support and help them – and be strong for them.” “CHASE also offers great support to all of us in terms of helping us to deal with the most difficult and challenging times that we face in helping these families. All staff members have clinical supervision and we work in a very caring environment. If someone is upset then there is always someone here to listen.”
CHASE Community Care Team Member Marina Crail
Marina – Supporting Families in Surrey Caring for the complex needs of a seriously sick child, chatting to a bereaved parent or listening to the anxieties of a sibling are all in a day’s work for Marina Crail (29). Marina supports families in and around Dorking, Leatherhead, Ashtead and
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Bookham, and is out on the road most working days. She says the challenge of the job is enormous, but she loves the work and knows that what she does makes a real difference to the lives of these families. Marina said the role of nurses at CHASE has become more medically focused over the past few years, as
Janis – Supporting Families in Croydon and SW London Janis Wakefield lives and works in the Croydon area supporting families for CHASE. She currently looks after 26 families in this area, visiting them regularly at home to help with day-to-day needs. Janis explains: “Support for families in their own homes and communities is vital, and it is important for someone to be close at hand if there is an urgent call.” She has always worked in the field of care and has a wealth of experience caring for young people in the NHS and private sector. After a spell as “nanny” to her granddaughter, she joined CHASE five years ago. However, there is no typical day for Janis. “I will check my diary to see what I have planned for the following day but
CHASE welcomes your support. Find out more at www.chasecare.org.uk or call 01483 454213
Community Care Team community as well.” Janis has a relaxing and artistic hobby which she loves and which also benefits the young people she cares for: she makes them special greetings cards for birthdays and other occasions.
Janis says working for CHASE is wonderfully rewarding because she knows how much people really appreciate her support and they always look forward to her visits. She cannot imagine working anywhere else.
Janis in the Garden room at Christopher’s children’s hospice
when I get to the family I might find I am doing something completely different. “It might be a hospital visit – I will sit with children who are in hospital to give their parents a break. I might find when I get to their home that Mum might need to go out to the shops so I will look after the sick child while she is away. Sometimes I will take the siblings out somewhere as trips for them are a rare treat. “No two days are the same, but we always give families just a little bit of free time. Mum may not have been outside the door since my last visit, because of the intensive 24-hour care that her child needs at home.” Janis will sometimes give the children a massage if they are stressed – as this is very comforting for them. She is currently taking a comprehensive course in massage and once fully qualified, she will be able to offer massage therapy to the Mums as well. “We have massage therapists at our children’s hospice but it would be good to be able to take this out into the
Massage is very beneficial for babies and children with life-limiting conditions
Find out more at www.chasecare.org.uk/howCHASEhelps CHASE welcomes your support. Find out more at www.chasecare.org.uk or call 01483 454213
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Millie-May’s family – from Redhill illie-May is always laughing, really nosey and a real hit with everyone. Emma and Dave – Mum and Dad – describe her as a real treasure and Ruby, her nine year old sister, loves her to pieces. But life for the four year old has been a round of doctors, hospital, surgery and struggle. Millie-May’s life has been dominated by illness and challenge. She was born with the rare Costello Syndrome in 2003 – a debilitating syndrome with only about 300 cases worldwide. She has heart and kidney complications and has had a cardiac and respiratory arrest. On top of this, she has had bronchiolitis twice and suffered agonising pain caused by kidney stones that went undiagnosed for many months. She cannot feed orally, fully support her head, roll over, crawl or walk. She lives with constant breathing difficulties, which means being supported by a ventilator every night as she sleeps. Until she reaches the age of eight she has a high risk of developing tumours: hospital appointments are a regular routine. Millie and her family were first introduced to CHASE by their health visitor when Millie was not yet a year old. They were going through some of the most testing times. They now get invaluable and incredible support, both at Christopher’s and at home, without which life would have been much worse. Having previously worked in publishing, Emma is now Millie’s full time carer. Emma says: “I have to watch and entertain Millie all the time when she is at home, as well as providing for 100% of her needs. Despite all these challenges she has enriched our lives hugely.“ The family try to live as normal a life as possible, given the restrictions that MillieMay’s condition imposes, and they make an effort to go away on holiday which is important, particularly for Ruby. They went to Suffolk last year but Emma said it wasn’t easy – they had to take two cars because of all the equipment they needed to support their young daughter during their break. As such they really appreciate any breaks they are able to take at the CHASE
M
CHASE Care Team Member Gemma and Millie-May smiling for the camera!
children’s hospice, Christopher’s. “We get 15 nights from CHASE as well as the ongoing community help at home. They are brilliant. We drive up there and when you walk in you feel you are going home. You know everyone there has an issue so when I am plugging Millie-May into her feeding tubes, no one stares. “We really appreciate the support CHASE gives us as a family. They have brilliant siblings days and Ruby thinks it is wonderful. There are splash sessions for families as well, and when I take Millie-May to the ‘Little CHASERS toddlers group’ I can go and have a therapy session, either an Indian head massage, reflexology or
aromatherapy, it’s fantastic. “They do music therapy for the children as well; Millie-May got so excited one time there when she was able to ring a bell.” Millie-May has now put on weight and is improving – so much so that she was able to start at Brooklands special school at Reigate. Emma says: “There are a million things to think about, plan for and communicate to others just to ensure that Millie is packed up for school every day. I still have to watch her all the time when she is here so I really appreciate the ‘time-out opportunities’ that CHASE gives us as a family. Every day brings something different and I cannot imagine life without her.”
To read more CHASE family stories please visit www.chasecare.org.uk/familystories 1414
CHASE welcomes your support. Find out more at www.chasecare.org.uk or call 01483 454213
Tuckwell CHASE Lottery – Give it a Chance! he Tuckwell CHASE Lottery has recently celebrated its Tenth Anniversary Draw. The Lottery is really easy to play and gives you a chance to win £1,000, plus 70 smaller prizes, every week! Entry is £1 per chance and members can buy as many chances as they want. The lottery raises over £170,000 a year for each of the charities it supports, CHASE
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hospice care for children and Phyllis Tuckwell adult hospice. The lottery donation is one of the few regular, sustainable sources of income that the two hospices can rely on each month. Its annual donation to CHASE hospice care for children provides support in the home and at Christopher’s for sixteen families for a year.
Former BBC Southern Counties Radio breakfast presenter Fred Marden draws the winning ticket for the 10th Anniversary Draw at the CHASE Fundraising Office
Tuckwell CHASE Lottery Application Form Title.................... Initials........................ Surname................................................................................................................................ Address................................................................................................................................................................................................. .............................................................................................................................................................................................................. Post Code......................................... Telephone................................................................................................................................... NOTE: YOU MUST BE OVER 16 YRS OLD TO PLAY Cheque Payment
■
I wish to buy chance(s) each week for 13/26/52 weeks and remit a cheque for £ made payable to 'TC Lottery Ltd'
■
Standing Order Payment To ........................................................................ Bank plc Branch ............................................................... Sort Code
■■ ■■ ■■
Account Number
■■■■ ■■■■ ■■■■ ■■■■
Account Name .................................................... PLEASE DEBIT MY ACCOUNT AS PER THE FOLLOWING DETAILS : Ref no: Office use only Nat West Bank plc, Farnham Payee: TC Lottery Ltd Account Number 59020024 Sort Code 60 08 15 Commencing (date)............................................................. the sum of:
■ ■ ■ ■
chance(s) @ £4.34 = £ ......& thereafter monthly chance(s) @ £13 = £ ........ & thereafter every 13 weeks chance(s) @ £26 = £ ........ & thereafter every 26 weeks chance(s) @ £52 = £ ........ & thereafter every 52 weeks until further notice.
Signed.................................................................................................... Dated.................................. Tuckwell CHASE Lottery is registered with the Gambling Commission under the Gaming Act 2005. www.gamblingcommission.gov.uk. Lottery Manager: Susan Wade Please fill in your details together with your preferred payment option, then simply send it to Tuckwell CHASE Lottery Ltd, Freepost (SCE 6595), Waverley Lane, Farnham, Surrey, GU9 8BL.
CHASE welcomes your support. Find out more at www.chasecare.org.uk or call 01483 454213
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Donation form
Donation form
CHASE supports families with children and teenagers who have life-limiting or significant life-threatening conditions. Specialist practical and emotional care is provided free-of-charge in their own homes and communities throughout SW London, Surrey and Sussex, and at Christopher’s, our children’s hospice. CHASE only receives minimal, short-term government funding so we rely on you.
I would like to donate to 1) YOUR DETAILS Title
Forenames (in full)
Surname Address
Postcode (required for Gift Aid) Email
Telephone
2) PLEASE TICK THE APPROPRIATE BOX
I WOULD LIKE TO GIVE A REGULAR GIFT, PLEASE SEND ME FURTHER DETAILS
I WOULD LIKE TO GIVE A SINGLE DONATION (DETAILS BELOW)
3) CHEQUE DETAILS I enclose a cheque for £
payable to CHASE
4) I confirm that I pay an amount of income tax and/or capital gains tax at least equal to the tax that CHASE reclaims on my donations in the tax year. Please tell us if your donations no longer qualify for Gift Aid. Gift Aid increases I want the charity to treat all donations I have made for the six years prior to this year the value of your (but no earlier than 6/4/2002) and all donations I make from the date of this declaration donation at no until I notify you otherwise, as Gift Aid donations. extra cost to you! Please tick OR: I do not pay tax. Please update your records.
5) DATA PROTECTION CHASE hospice care for children (and CHASE Hospice Trading Ltd) would like to hold your details in order to keep you up to date with our news, events and fundraising activities. We will not sell your details to any third parties, however in the future we may share details with other trusted organisations in the hospice movement. In order to carry out our work we may need to pass your details to service companies who are authorised to act on our behalf. If you would prefer us not to use your details in these ways please tick here If you would prefer not to receive thank you letters from CHASE for any donation that you may make please tick here
6) CREDIT CARD DETAILS Please charge £ Visa
to my credit/debit card
Master card
Card no. Start date
Switch*
Other (please state)
/ / / / / Expiry date / Issue number (switch only)
Name as printed on card Signature
Card Security No.
7) PLEASE RETURN FORM TO THE ADDRESS BELOW CHASE hospice care for children, Loseley Park, Guildford GU3 1HS. 1616
Tel 01483 454213, Fax 01483 454214, info@chasecare.org.uk. Reg. Charity no: 1042495
www.chasecare.org.uk/donate
CHASE welcomes your support. Find out more at www.chasecare.org.uk or call 01483 454213
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CHASE welcomes your support. Find out more at www.chasecare.org.uk or call 01483 454213
17 17
PROUD TO BE
SUPPORTING Chase Childrens Hospice
PROUD TO BE
SUPPORTING Chase Childrens Hospice
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Tel: 01252 820858 Fax: 01252 820878 Email: sales@handles4doors.co.uk www.handles4doors.co.uk
Sovereign House, 17 South Street, Farnham, Surrey GU9 7QU Tel: 0845 956 9723 calls charged at a local rate
Discover the world of Integrated Play
Sponsors of the London Play Adventure Playgrounds Awards 2008
Call today 01483 813 834 email eibe@eibe.co.uk www.eibe.co.uk
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Over 30 Fireplaces on display. Traditional and contemporary Fireplaces. Gas, electric and solid fuel. Free no obligation survey. Fitting service available.
ulpture Ga G Garden a arden S culpture Birtley B irtle l y sculptu sculpture l ure tr trail ail 2009
Over 100 pieces Over set in glorious gardens and parkland.
FREE ENTRY ENTR RY - FREE F PARKING PARKING A Open daily Sat. 18th h April - Sun. 31st May T Teas eeas 3-5pm (W (Weekends Weeekendss and Bank Holidays only) All sculpture sculp pture for sale Special event on Sun. 19th April Ap pril with sculpture demonstrations by Carlos C Dare. Proceeds from teas to CHASE.
Birtley House, Bramley, Bramleey y, Guildford, GU5 0LB 01483 892055 www www.birtleyevents.co.uk w..birtleyevents.co.uk
Rhea’s family – from Croydon
F
rom the day she was born Purabi, from central Croydon, believed that there was something wrong with her baby, and after a cranial ultrasound at two months old they realised that little Rhea had major brain damage. Rhea has cerebral palsy with many complications, which include scoliosis, sleep disturbances, breathing problems and constipation. She has a developmental disorder resulting in the two sides of her brain having abnormal structures, and cortical blindness, which means her eyes work but her brain doesn’t carry the message to enable her to see. She also has severe epilepsy, and has to be tube fed a special diet for her epilepsy - all of which means she is a very sick child. She is under the care of eight different consultants at Great Ormond Street Hospital as well as several local professionals, and she needs 24 hour care. Purabi’s husband left her with the baby to care for but she is fortunate to live with her father Vithal, now a widower. They share Rhea’s care between them, but life has proved to be more complicated than they could ever have imagined. Their kitchen looks like a laboratory with all Rhea’s feeding equipment and other apparatus that is needed. Life is a catalogue of hospitals, paediatricians and consultants and Rhea has had three major operations. Initially they struggled on their own and found it very difficult to cope, until a care worker suggested they contact CHASE. Purabi had never thought of Rhea as being life-limited – and the idea of using a hospice service was very frightening. But they decided to approach CHASE and it proved to be a turning point in their lives. Purabi, Rhea and Vithal now receive regular visits from Care Team Member, Val O’Donnell, who has been going to their home on community visits for four years so she knows the family really well. Val cares for Rhea’s medical needs and has a really calming effect, giving
Purabi with Rhea on the London Eye
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CHASE welcomes your support. Find out more at www.chasecare.org.uk or call 01483 454213
“It is incredibly difficult and heartbreaking to look after your life-limited child 24 hours a day putting in 100% effort, love and care into what you do for them, knowing all along that one day they will be prematurely snatched from you and you will be left with nothing, but a shattered heart and a massive void in your life. CHASE helps you to care for your child during their life, whilst helping you prepare for a future without them.” – Purabi, Rhea’s mother Purabi and Vithal an opportunity to be Mum and Grandad for a while, instead of just carers. Christopher’s, the CHASE children’s hospice, is also a wonderful haven for Rhea and gives Purabi and Vithal an opportunity to take a break from their exhaustive carer’s routine. Vithal always goes to the grandparents’ days run by CHASE, which provide grandparents with an opportunity to meet others in the same situation, to share their feelings and experiences. Purabi and Rhea used to visit Christopher’s every fortnight when Rhea was younger, to attend Little CHASERS, a pre-school group where there were some excellent activities for her to enjoy and where Purabi made friends with other mothers. They like to take the short breaks that CHASE offers in big chunks. Purabi says: “You just pack your bags, take Rhea to Christopher’s and fly away – it’s wonderful! It gives us something special to look forward to. We are so grateful to CHASE because without a break sometimes we would never be able to cope.”
“Christopher’s is an amazing place. If I phone around midday Rhea has probably already been in the pool, the sensory room and the art room. Vicky does music therapy with her and there is a ballet school coming soon to entertain the children. There are so many things at Christopher’s that she can do that we cannot do for her at home.” Purabi, Rhea’s mother
CHASE welcomes your support. Find out more at www.chasecare.org.uk or call 01483 454213
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Christopher’s, the CHASE children’s hospice n addition to the care they receive in their own homes and communities throughout the year, all families are welcomed for short breaks at Christopher’s, the CHASE children’s hospice. At Christopher’s the CHASE Care Team takes over the child’s care routine completely. This can be complex and many children require constant care and attention 24 hours a day. Without support, it can be exhausting for family members who care for the child, which also has a strong effect on siblings and the extended family. This is why Christopher’s provides opportunities for the whole family to relax and recharge their batteries. It is a welcome break that gives them the precious time and space they need to make the most of every moment together with their life-limited child. There are four family flats, as well as nine bedrooms for children or teenagers who can also spend time at Christopher’s independently while the rest of the family takes a break elsewhere. Christopher’s has a friendly ‘homefrom-home’ atmosphere with many wonderful therapeutic facilities for children
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“Sophie has experienced so much during her time at Christopher’s and we have many lovely memories; we were able to take her swimming, for trips out and she even met Mickey and Minnie mouse!” – A CHASE family. and families to enjoy. The fun times enjoyed here today become happy memories for the future that will last forever. In a safe and secure environment, the hospice also provides emergency, end-of-
life and specialist palliative care (palliative care relieves or soothes the symptoms of a disease or disorder without effecting a cure). Therapeutic Facilities The wide range of therapeutic facilities provide opportunities for families and children to do things that might be taken for granted by others. For instance, swimming in the hydrotherapy pool with the CHASE Care Team at hand and a special harness for children who need it can be a wonderful experience for the whole family. Families even get together at the regular SPLASH! sessions, which allows them to get to know others in similar situations. Isobel with CHASE Care Team member Jo, at the Music Workshops with the Royal
FUNtastic with Indigo at Christopher’s
Philharmonic Orchestra at Christopher’s.
CHASE welcomes your support. Find out more at www.chasecare.org.uk or call 01483 454213
Evie and Maddie with mum Carrie and aunty Mandy, and Indigo with mum Emma, at the CHASE hydrotherapy pool. HRH The Countess of Wessex with Madeline and her parents Katherine and John, from West Ewell, Surrey.
At Christopher’s, life-limited children, teenagers and their families can use special accessible computers, interact with sounds, lights and vibrations in the Sensory Room, de-stress with an aromatherapy massage, play with musical instruments during a music therapy session, and much, much more. Special events Throughout the year there are lots of fun events designed to put smiles on faces and create special memories for tomorrow. At Christmas FUNtastic, a sensational pop-band for children, visited Christopher’s to sing their own versions of Christmas carols to children who receive care and support from CHASE. CHASE Royal Patron, HRH The Countess of Wessex, recently made a trip to meet families at Christopher’s and to see the developments that had been made there since she performed the official opening in 2002. The Countess saw the hobbies room, teenage den and therapies room, as well as the lounge and recently built garden room which she had not seen before.
Find out more at www.chasecare.org.uk/aboutCHASE CHASE welcomes your support. Find out more at www.chasecare.org.uk or call 01483 454213
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Friends of CHASE Groups “It doesn’t matter how much time you have or what you can do – every little helps.” – Sarah Johnson, Epsom Friends of CHASE Group The first ‘Friends of CHASE Group’ was set up in Richmond and Kingston in 1995. CHASE now has 19 Friends Groups and hundreds of supporters who are the cornerstone of CHASE, not only raising fantastic amounts of money but spreading the word and encouraging others to raise funds for us too. We need our supporters to help set up more Friends Groups or get involved with our existing Groups. Fundraising is a really beneficial way of having fun and meeting new people, as all your efforts make an amazing difference to the lives of local families with life-limited children and teenagers. To find out more, visit www.chasecare.org.uk/friendsgroups.
Map showing all 19 Friends of CHASE groups.
Volunteering “I do get a great sense of having done something worthwhile. Being able to give up my time and not expect anything back in return is very rewarding and I enjoy the sense of cameraderie and support at CHASE. Everyone is always looking out for everyone else.” – Tim Hope, CHASE Volunteer CHASE hospice care for children is fortunate to have a team of 200 committed volunteers who give up around 1100 hours of their time every month to help the charity. If paid a salary, this would cost CHASE around £12,000 a month or £145,000 a year – proving that they are worth their weight in gold! Volunteers undertake a wide variety of tasks at our Fundraising Office and at Christopher’s, our children’s hospice.
Their help at fundraising events throughout SW London, Surrey and Sussex is vital, and they form an integral part of the CHASE team. Meet new people and make new friends while helping life-limited children and their families: Volunteer work can provide some of the most rewarding experiences of your life. To find out more visit www.chasecare.org.uk/volunteers
Tim Hope volunteering at Christopher’s, the CHASE children’s hospice
Fundraising at School Fundraising can be a great way for everyone to get involved in a fun, team project that will make a real difference to the children and families CHASE supports. For example, all three classes of Year 2 students from Brooklands College in Weybridge brainstormed and planned their own fundraising themes, and then combined their events with a ‘Fancy Dress Day’ that raised £1,500 for CHASE. Be on our team – start with an A-team! Why not set up an A team? Like a charity committee, A-Teams hold meetings, decide on events, learn how to budget and plan an event or activity – with the ultimate satisfaction of raising money for a much-needed cause. Our Fundraising Team can help you with your fundraising whatever your plans - from Christmas fairs to fancy-dress days, we can give you all the help and advice you need. Find out more at www.chasecare.org.uk/schools
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Fundraising students from Brooklands College
CHASE welcomes your support. Find out more at www.chasecare.org.uk or call 01483 454213
CHASE Challenges & Events Challenges Many people take part in sponsored challenges for CHASE, doing amazing things to raise vital funds to keep the CHASE service running. Just a few of the challenges that could raise funds for CHASE include fire-walks, parachute jumps, running events, car rallies, bike rides, white water rafting, head-shaves, silences... anything that is a challenge can be an inspiring fundraising opportunity! To take part in a challenge for CHASE please contact the Fundraising Office on 01483 454213 or visit www.chasecare.org.uk/challenges You can also use the sponsorship form on the centre page of this magazine. There will always be a challenge for everyone!
Lands End to John O’Groats The intrepid Race for CHASE team made it all the way to John O’Groats in Scotland from Lands End in Cornwall in an incredible five days – cycling an average of 180 miles a day on the gruelling 900 mile journey. Organised by Jules and Iain Russell from Guildford, whose family is supported by CHASE, the team raised over £50,000 for CHASE. Find out more at www.chasecare.org.uk/raceforchase
Events
Canada to Mexico One of the most extreme challenges undertaken by a CHASE supporter was Andy West from Guildford, walking from Canada to Mexico in 2008. Andy followed the Continental Divide Trail down the Rockies and ended up hiking around 2,700 miles in five months. Find out more at www.chasecare.org.uk/andywest
Our dedicated supporters and Friends Groups organise hundreds of fundraising events each year. From wine tasting to antique trading, and from art shows to discos, these events raise vital funds to sustain the CHASE service. CHASE also organises a Fun Run at Loseley Park in Guildford, a sponsored ‘bridges’ walk in London, and has a team of Marathon Runners whose members have collectively raised over £1 million in the past ten years. To see a full list of CHASE events just go to www.chasecare.org.uk/events
Loseley 10K & 4k Fun Run Each year the Loseley 10k and 4k Fun Run in November attracts about 1,000 runners, who hit the trails around Loseley Park for CHASE. Last year they raised £38,000 to help the families with life-limited children and teenagers CHASE supports. Both routes loop over road, track and field in the beautiful grounds of Loseley Park, near Guildford, starting and ending in front of the magnificent Loseley House. Everyone agrees that the hilly 10K course is a great opportunity to test their fitness levels, while the 4k route is enjoyable whether you race, jog, or stroll at a leisurely pace with the whole family. To find out more go to www.chasecare.org.uk/loseleyRun Let’s Lunch The CHASE Let’s Lunch campaign aims to get as many as people as possible to organise lunch with their friends, families or colleagues in the month of March and raise money for CHASE at the same time. CHASE Patron and GMTV Presenter Andrew Castle recently pledged his support for the campaign, saying: “We are planning to get some of our friends and family round for a special lunch for CHASE. This will be a great opportunity to get everyone together, have a catch up, and enjoy great food whilst raising money for CHASE.” To find out more please visit www.chasecare.org.uk/letslunch
Andrew Castle with CHASE staff members and supporter Ben Feist (with medal) after the Loseley 10K and 4K Run.
CHASE welcomes your support. Find out more at www.chasecare.org.uk or call 01483 454213
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Businesses supporting CHASE Supporting CHASE can enhance your organisation’s image with staff, suppliers, customers, and the local community, and generate some great PR coverage. You can enjoy a rewarding experience and make a real impact, whatever the size of your organisation. We would be delighted to work with you and find a way to get involved that suits your organisation.
“With the help of PR coverage we doubled our expectations in terms of the money we raised for CHASE and increased our profile with local businesses.” Daniel Beck, Daniel Alexander Consulting. To find out more please visit www.chasecare.org.uk/corporate or email corporate@chasecare.org.uk
The CHASE Care Team accept gifts from Philips employees for the children CHASE supports.
Gifts as presents When Ann and Robert Warne from Billingshurst held their Golden Wedding celebrations in 2008 they raised over £1,000 for CHASE by requesting donations instead of gifts. They also held a raffle on the night for CHASE, and all 100 guests were pleased to be able to support the charity. If you are celebrating a birthday, wedding or another special occasion and would like to request gifts to CHASE, our Fundraising Team can set up a unique Fund for you, so we can let you know the total raised and provide a list of donors (without detailing individual amounts). If you would like to make a one-off donation on behalf of a friend, family member or colleague, CHASE also has a range of gift cards as well as ‘e-cards’ for emailing – to find out more visit www.chasecare.org.uk/gifts
Gifts in memory
Lauren McKrell entertains at the memorial concert
Requesting or making donations in memory of friends or loved ones can be a very special way of celebrating their life and honouring the values and beliefs that were important to them. For instance, one supporter from Alton was able to realise the last wish of her
Legacies
husband by raising around £14,000 for CHASE in his memory. Sheila Betts’ husband Roy wanted to celebrate the 25th anniversary of their flower shop in Alton High Street with a flower festival. Plans got underway, but when the couple saw an episode of Challenge Anneka which was filmed at CHASE and highlighted the work of children’s hospices, they decided that evening that the flower festival should be in aid of CHASE. Sadly, the very next day Roy died. Sheila bravely decided to continue with his dream and added a memorial concert to the celebration which featured the Welsh Ynysowen Male Choir from Aberfan which was formed in 1968 after the
An anniversary card showing a donation has been made to CHASE
Aberfan disaster when 116 children died. Sheila requested donations in memory of Roy instead of flowers, and a collection at Roy’s funeral raised £640. The remaining money, totalling £7,000 was raised at the flower festival and concert. It became clear to Sheila that the audience had their own special people to remember, so she decided to hold another concert this year. She explained: “I decided to call the concert ‘A Night To Remember’, in memory of all those we love but see no longer.” The event was compered by her friend and regular customer at her flower shop in Alton, Alan Titchmarsh, and raised a further £6,500 in memory of her late husband Roy. To find out more about gifts in memory please visit www.chasecare.org.uk/giftsinmemory
Henah and CHASE Care Team Member Gemma
One of the best ways you can help local families with life-limited children and teenagers to make the most of their precious time together is by remembering CHASE in your Will. This helps to ensure that families who come to us for help and support in the future can live as full lives as possible, creating special memories and making every single day count. To find out more call the CHASE Fundraising Office on 01483 454213, email legacies@chasecare.org.uk or visit www.chasecare.org.uk/legacies
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CHASE welcomes your support. Find out more at www.chasecare.org.uk or call 01483 454213
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