This is a very special issue – the 18th edition of together magazine. The number carries special significance for us because the numerical value of Chai, the Hebrew word for ‘life’, is 18. The following pages illustrate, in so many ways, why the name Chai, chosen by my late mother Frances Winegarten z’l and Susan ShipmanZuckerbrod is so fitting. Our purpose is always to bring meaning and value to our clients’ lives, each and every day, whatever their challenges may be.
It’s wonderful to see the tangible benefits of our services on clients’ wellbeing and outlook. There’s no better proof than seeing the fabulous women on our cover who took part in our Style Workshop. It gave them an opportunity to view themselves in a new and positive light following their cancer diagnosis. Their words on p6 are both moving and uplifting.
Many more services are featured in this issue, including our new art and creative writing workshops. These give clients inspiring and absorbing ways to forget about cancer for a little while, and instead tap in to self-expression and imagination in a supportive group environment.
We are blessed to have around us supporters who see our vision and are committed to helping us make it a reality. One of those was Lord Young of Graffham z’l, our beloved and esteemed President for 16 years, who sadly passed away in December 2022. His loss is keenly felt but overriding that, is gratitude for having been able to benefit for so many years from his wise counsel and guidance.
Chai’s CEO, Lisa Steele, reports on exciting developments over the past year. These include sharing the breadth of our supportive cancer care services with MPs who visited our flagship centre and subsequently commended us in Parliament. Also, our co-partnership in raising awareness of the ground-breaking NHS BRCA-testing programme for the Jewish community.
So much is happening in the field of cancer research and treatment – but some questions accompany every cancer diagnosis: ‘Is there a "miracle" cure out there?’ and ‘Is my treatment the best there is?’ We take the sensationalism out of the equation to give you common-sense information in our medical articles. The expertise of our Medical Advisory Panel continues to ensure we remain ahead of the curve in the development of our services.
Elsewhere in this issue of together, we feature glittering personalities from the worlds of fashion and philanthropy, including A-list designer Jenny Packham, guest speaker at our Ladies Lunch, and cherished donors Stanley z’l and Zea Lewis. We have a big cheer, too, for the stars who put the fun in fundraising with their incredible (sometimes madcap!) events and challenges.
Together with you, our wonderful supporters who turned out in your thousands for The BIG ImpaCt campaign, our heartfelt thanks –you make everything we do, possible.
Founder Presidents
Susan Shipman-Zuckerbrod
Frances Winegarten z’l
Chairman
Louise Hager
Chief Executive
Lisa Steele
Honorary Patrons
Maureen Lipman CBE
Chief Rabbi Ephraim Mirvis
Trustees
Louise Hager
Philip Hertz
Alexandra Maurice
Rafi Saville
Richard Segal
Susan Shipman-Zuckerbrod
Leon Shelley
Dr Adrian Tookman
Medical Patrons
Prof Michael Baum
Prof Michael Brada
Dr Rachel Craig
Dr Niki Davies
Prof Michael Douek
Prof Andrew Eder
Prof Rosalind Eeles
Dr Ian Ellis
Mr Daren Francis
Miss Joanna Franks
Prof Anthony Goldstone CBE
Prof Daniel Hochhauser
Prof Gordon Jayson
Mr Amir Kaisary
Dr Daniel Krell
Dr Jonathan Krell
Dr David Landau
Prof Jonathan Ledermann
Dr Gillian Marks
Dr Jane Neerkin
Prof Gordon Rustin
Prof Karol Sikora
Prof Albert Singer
Dr Jonathan Sive
Dr Adrian Tookman
Dr Laura Tookman
Advisory Board
Brian Brick
Jo Coleman
Alan Fell
Jonathan Freedman
Michael Glass
Diane Kenwood
Alexandra Maurice
Robert Prevezer
Marc Samuels
Dr Adrian Tookman
Consulting at government level and developing new services; CEO Lisa Steele reports on how Chai is defining what matters in cancer support
Can a Style Workshop really boost your self-esteem after cancer? We’ll let our cover stars tell you!
The Jewish Community's NHS BRCA-Testing Programme launches soon. Here’s everything you need to know about it
Those doing the caring for a cancer patient
don’t always realise support is there for them, too. Clients share their experiences
It’s natural to scrutinise every aspect of a cancer diagnosis. How far should you take it?
Professor Daniel Hochhauser advises
Re-live the thrills of our spectacular fundraising campaign weekend last November, which raised over £3m. Here’s how YOU did it!
The most glamorous Ladies Lunch ever, saw red-carpet-toroyal designer Jenny Packham pack the room to raise vital funds for Chai
Thirteen years after it launched, Chai’s Medical Clinic continues to innovate with joined-up care. By Clinic Consultant, Dr Rachel Craig
For Stanley z’l and Zea Lewis, giving back to the community was always a priority. Two of their children, Cheryl and Michael, share memories of their remarkable parents
26
New service spotlight: Creative writing
‘It’s one and a half hours of escapism with tea and biscuits. What’s not to love?’ Ivor Baddiel and clients on the rewards of putting pen to paper
CHAI CANCER CARE
Requests the pleasure of your company for The 2023 Natalie Shipman Memorial Lecture TAKING NEW CANCER DRUGS TO THE PATIENT
Keynote Speaker: Professor Ruth Plummer Professor of Experimental Cancer Medicine, Newcastle University
Date: Wednesday 8 November 2023
Doors open: 7.30pm Lecture begins: 8pm
Admission is free
A painting can express so many emotions. In Manchester’s art workshop, clients find their visual language – and just look at the results!
The important role patients play in finding new ways to treat cancer.
By Dr Jonathan SiveDiscover the Japanese pressure point treatment that can dispel physical and emotional tension held in the body
Celebrating a coronation, testing the old grey matter, learning for 24-hours… It’s time to kvell over 12 months of wonderful events for Chai
Step up to the podium, everyone who challenged themselves to raise money for Chai this year. You’re all medal-winners to us!
Easy ways to donate
Cover photography Alexandra Taibel
Cover styling Suzanne Bernie and Emma Letzer
This edition of together is generously sponsored by The Emmes Foundation
Editor: Deborah Wald
Design: Creative & Commercial
Printing: EXCO DPS
© Chai Cancer Care 2023
Chai Cancer Care, 142 - 146 Great North Way, London NW4 1EH emmes FOUNDATION Together Magazine 2023/24 3
New services, conversations about cancer support services at government level and a groundbreaking genetic testing programme in the community; Chief Executive, Lisa Steele reports on momentous developments at Chai
Ourorganisation is a lifeline to many in the Jewish community at a time when they are their most vulnerable. The compassion, professionalism and innovation for which we are known, means we are frequently referred to by cancer charities and we are an essential resource for oncologists and GPs who signpost our services to their patients.
Our 33 years of experience was recognised in May of this year, when we welcomed Craig Tracey MP and Nicola Richards MP, Chair and Vice Chair respectively, of the All-Party Parliamentary Group on Breast Cancer (APPG) to Chai’s flagship centre in Hendon. The APPG works to improve the effectiveness of the NHS breastscreening programme.
Together with Louise Hager, Dr Adrian Tookman, Chairman of our Medical Advisory Panel and Marc Levy of the Jewish Leadership Council who facilitated the visit, we shared our in-depth understanding of what good supportive cancer care looks like. Touring the centre and highlighting the physical, emotional, and practical services we provide, our visitors were particularly struck by the extent of services available for family members, colleagues or friends of the patient. So, it was hugely gratifying later that month, to hear Nicola endorse Chai’s work in the House of Commons, during a question on the Major Conditions Strategy (a plan for managing the most serious health conditions). Addressing Maria Caulfield MP, Under Secretary of State for Mental Health and Women’s Health Strategy, Nicola said, ‘It was a pleasure to visit Chai Cancer Care. They have
developed a blueprint for how to best support those affected by cancer, and I will take away a lot of lessons from their approach.’ She asked the Minister to congratulate Chai and, ‘ensure that the Major Conditions Strategy goes as far as possible to offer better, more joined-up care to patients across the country.’
A further exchange of expertise this year saw Louise, myself and Chai’s co-founder and Life President Susan ShipmanZuckerbrod who lives in Israel, visit the Shaare Zedek Medical Center in Jerusalem where we were shown round their state-ofthe-art Helmsley Cancer Center. We met specialists in oncology, radiotherapy, genetics and palliative care and heard about the latest innovative developments in cancer diagnostics and treatment.
There was much common ground between us over the importance of holistic care, albeit theirs is in a medical setting and Chai’s is primarily non-medical. We also witnessed inspiring sensory ideas that echo our ethos: a green, living environment to nurture wellbeing, and activities for children to build confidence and strength.
It’s fair to say the specialists with whom we met were impressed as we explained the range of services we provide to patients and their loved ones – all at no cost to the user. Support for the non-patient is less well developed in Israel, so our evidence of the worth of 360-degree care was greeted with immense interest. We highlighted, too, the governance and protocols in place for our broad client base.
While in Israel we also met with the founders of cancer support organisations Mandalet HaLev in Modi’in and Bishvilaych in Jerusalem, with whom we shared best practice and an exchange
of information and experience. It was a timely opportunity to make these organisations aware that we can offer services for their English-speaking clients by phone and through Zoom and Teams.
One of the cornerstones of Chai is that we tailor and adapt our services to the individual as well as to the demographic of each area. With 11 centres across the UK, and over 100 counsellors and therapists on the ground, our teams truly understand what works best in each situation so we can meet the needs of all our clients, wherever they are.
The role of genes is increasingly significant in understanding why certain cancers occur. The BRCA1 and BRCA2 gene mutations, associated with breast, ovarian, prostate and pancreatic cancers, were first identified in 1994. Their prevalence in the Jewish community is historic and gives rise to a 70% chance of breast cancer developing, compared to 12.5% for women without the mutation; women have a 17% - 45% higher chance of developing ovarian cancer and men, a 25% greater chance of developing prostate cancer than those without the faulty gene.
As the number of cancer diagnoses in the UK is predicted to rise from 3.5million in 2025 to 4 million by 2030*, we are gratified and encouraged that NHS England is launching the groundbreaking NHS Jewish BRCA Testing Programme across the community to help identify those carrying the faulty gene. The programme will give those who choose to test, greater control and choice over what to do, should they be BRCA-positive. Chai and Jnetics (the charity that educates about Jewish genetic disorders), won the tender to spearhead the awareness campaign for NHS England, with stakeholder support from all sections of the community and wider cancer support services. Extensive publicity will lead up to the launch in early 2024 and you can find out more about this landmark stride to save lives on p10. We are delighted to learn that this valuable programme has in no small part contributed to achieving funding for the (PROTECT-C) study testing cancer genes in the general population.
This year there has been a noticeable increase in the number of younger clients coming through our door: 31% are now aged under 50, a 29% rise on last year, and account for 40% of all our 20,207 appointments. This emerging demographic prompted us to offer small, facilitated groups for children affected by a cancer diagnosis in their family, based on different age groups, during the summer holidays. In addition, this autumn we will launch two new parent groups, focused on how to support children: for when a child has cancer; and for when a parent has been diagnosed. Chai’s second largest region, the Northwest (covering North and South Manchester, Leeds and Liverpool) has seen an expansion in infrastructure and services this year. Two new roles have been created to meet the demand: Amanda Newdall, a Chai counsellor for eight years, is now Head of Clinical Services
focusing on the increasingly complex needs of our clients. Gerry Singer, who has been with Chai for seven years, is now Northwest Head of Operations, working to raise awareness of our services and the NHS BRCA testing programme across the community, and among GPs and cancer specialists. Additionally, our Leeds hub has doubled in size allowing us to give support to more clients.
Overall in the UK, we are now supporting over 4,000 clients and our team of counsellors, practitioners and managers has grown, too, by 13%. Inevitably, expenditure is up and not always in ways that are obvious. For instance, we arranged 1778 journeys bringing clients to and from our centres, by taxi or by trained volunteers last year. Supervision is another hidden cost. We have a duty of care to both our clients and our frontline teams. As a counsellor myself, I know how intense this work is, and why safeguarding and mental health support is essential for our counsellors, therapists, client service managers and volunteers.
I have been at Chai for 22 years, first as a counsellor, then as Head of Client Services, and as CEO since 2012. Since our inception the client has always been at the centre of everything we do. I am very proud of how swiftly we can move to set up a new service or group and see the immediate and tangible benefit to their lives. The joint dedication of our holistic teams and medical experts has made something truly unique in supportive cancer care. What a privilege it is to be part of an organisation that makes such a difference.
*Macmillan Cancer Support Exchanging specialist knowledge at the Shaare Zedek Medical Center: Dr Sion Koren, Susan ShipmanZuckerbrod, Louise Hager, Lisa Steele, Prof Ben Corn“
Chai has developed a blueprint for how to best support those affected by cancer. I take away a lot from their approach’
Nicola Richards, MP
Blooming and bonding on the Style Workshop.
From l to r: Ira Macmull, Ruth Gomm, stylist Emma Letzer, Amanda Goodman, stylist Suzanne Bernie, Natali Weisz. Below: New shapes, textures and colours ready to inspire
Styling: Suzanne Bernie and Emma Letzer
suzannebernie.com
@suzeberniestylist
@emmaletzer
Hair & Make-up: Ayelet Garson
Photography: Alexandra Taibel
On a sunny day in June, in a room at Chai HQ in Hendon, racks of summer-bright clothes are moved into position. There’s a table of accessories –a hair and make-up artist has arrived. Soon, a group of clients will arrive for lunch before the day’s Style Workshop begins. ‘This service is not about fashion in the catwalk sense,’ says personal stylist, Suzanne Bernie. ‘It’s about seeing oneself in a new light during and after cancer treatment.
‘It’s rare to find anyone without insecurities about their image, and cancer’s aftereffects can magnify these,’ Suzanne continues. ‘Our identity is so bound up in how we view ourselves that changes to
Accepting the changes to your body from cancer surgery and treatment can take time. Chai’s new Style Workshop service helps clients find their way
body shape, skin and hair can leave people feeling lost. Styles they wore before, now don’t suit. ‘So often, I hear them say, “I don’t recognise myself anymore.”
The Style Workshop, run by Suzanne and fellow stylist Emma Letzer, doesn’t aim to gloss over the severity of what a person has endured but instead helps them towards acceptance of a different version of themselves. ‘This is a safe space where clients can share their cancer experiences, bond, and support each other. Some are nervous and may never have spoken about their body changes before. Then I say, “Right! Time to leave cancer aside and have some fun!” It’s a relief for them to let it go.’
In advance, clients send in their photos and complete a form about their clothes and colour preferences. Suzanne and Emma then have a FaceTime call with them to learn more before heading out to source a range of new wardrobe pieces to delight and surprise. ‘Stepping out of your clothes comfort zone is one of my top tips for building style confidence,’ says Suzanne. ‘Clients learn so much from seeing how colours work on each other. It’s a real “Wow!” moment when you discover the right tones for your skin.’
When each participant tries on their new outfits, there is spontaneous applause from the others – the room is bubbling with positive energy. Suzanne and Emma use their styling skills to show a new way to tie a scarf, a looser way to wear a shirt over a T-shirt, a
shape-defining belt: simple tricks that release a more confident spirit in the wearer.
‘Clothes can wake up parts of our personality that we didn’t know were there,’ proclaims Suzanne. ‘They build self-esteem and can make a woman feel relevant and desirable so they can step into the outside world feeling good about themselves.’
Diagnosed with ovarian cancer last year, Ira had surgery in October, followed by 18 weeks of chemotherapy. She is now on a drug trial which will last for two years.
‘I don’t feel like I used to. I’ve become a different person, having lost a stone in weight. I always wore overshirts to hide my hips, then suddenly they disappeared! It was no bad thing but I was no longer sure what size I was, nor what suited me.
‘The Style Workshop sounded like fun – and it was. I hoped it would make a difference to the way I felt about myself – and it did! Suzanne
and Emma highlighted that, because I wasn’t going out very much, I’d end up wearing the same dull things every day: shapeless black, white, and beige. Now I know what not to wear as much as what to go for when I’m shopping. It’s given me the confidence to bother about looking good.
‘I was impressed with the clothes, so much so, I bought the pink print dress for my granddaughter’s bat mitzvah. I felt so glamorous wearing it, and my family have noticed the difference in me. Suzanne and Emma were so wonderfully encouraging. Now I change my outfits almost daily and have introduced a lot more colour into my wardrobe and clothes choice. The best aspect was meeting such lovely people. By the time I left, the difference in me was remarkable. I was upbeat and excited – I'm tapping into that daily.'
‘By the time I left, the difference in me was remarkable’
1. Be adventurous and allow yourself out of your clothes comfort zone. It costs nothing to try something new.
2. Feel comfortable in your clothes. Don’t look at the size on the label, wear the size for now.
3. Things can be altered. If something fits well on the hips but is big on the waist, get the waist taken in.
4. Try new prints, textures, and colours. If your face comes alive, go for it. If not, walk on.
A day after her 36th birthday in October 2022, Natali was diagnosed with breast cancer. She had a lumpectomy, major reconstructive surgery, 12 cycles of chemotherapy and nine of radiotherapy.
'Cancer exposed me in ways I couldn’t imagine. To be that young… it’s a big shock. I felt betrayed by my body, and it will take some time until I can trust it again. Since the chemo, I suffer with pain all over my body, especially in my joints. I lost my hair, my nails were affected, I have scarring. I long to feel normal again…
'I was super-excited to do the Style Workshop and find out what I could wear now, and how to be the best “me” with my new shape.
'Having chemo has made me think about the importance of how I look on a deeper level. The pink suit and vest top made me feel wonderful, and I hope the photographs of us all show other women how they can rock, too! I never wore make-up, but in just five minutes, the make-up artist showed me a few easy things I could do. She made me look amazing. I am still a work in progress, coming to terms with my new body. I don’t know how it will behave but the workshop is a huge step along that route.’
Amanda Goodman, 62 Diagnosed with breast cancer in July 2022, Amanda had 16 cycles of chemotherapy prior to surgery, followed by radiotherapy. In August, she finished immunotherapy treatments and is currently cancer free.
‘Fear was the biggest emotion when I was diagnosed, and it
‘I hope we show other women how they can rock, too!’
‘I’ve learned to value wearing what makes me feel good’
‘I looked in the mirror, I was amazed at what I could see!’
Ruth Gomm
was mainly focused on losing my hair. I couldn’t even think about the implications of surgery. The side effects of the drugs have stayed with me: hair loss, fatigue and extra weight.
'The workshop gave me a real boost, trying on clothes in colours and styles I would never normally choose. I learned to value wearing what makes me feel good and not to worry about the size on the label, that gold jewellery suits me well (I’ve always worn silver), and that despite being bigger, a belt gives me a better shape. I learned about using different textures and going bold and bright from top to toe – I’ve never had the confidence to do that before.
'It was wonderful seeing the smiles of everyone in their new outfits, with their make-up done. I had my hair cut short before chemo and had no idea how – or if – it would grow back. It was a nail-biting time – but I see it can look great short. It’s given me such a lift!'
In July, Ruth finished 18 months’ treatment for breast cancer involving chemotherapy, radiotherapy, and Herceptin injections. Weight gain, hair-, eyebrowand eyelash-loss, she says, made her hate herself. This poem (right), is Ruth’s response to the Style Workshop.
For details of the Style Workshop, please contact charlotteh@chaicancercare.org or call 020 8457 3238
The day finally arrived! I was not sure, I didn’t know what they had in store. For styling clothes and make-up too I thought: ‘This could be the new you!’ First was lunch; yum food and lots of chat, Then introduction talks, in a circle we all sat. Finding out about each other; what clothes we wear, Talked a bit about our cancer; but best not to go there. The day was about having laughs and lots of fun. Choosing summer outfits to wear in the sun, Suzanne and Emma, our Stylists, they advised, What colour and style suited and the right size. There were blues, greens, silver, and gold too. Suzanne and Emma knew what was good for you. There were rails of beautiful clothes to choose, Jewellery, handbags, scarves and even some shoes. Pretty tops, trousers, cardis and jackets too, Put a vest under a shirt, tie it like a bow, I’ve learnt to show my waist, I didn’t know!
Don’t forget accessories, jewellery, and fascinators too. Don’t go yet! I’ve still lots more to tell you!
Gorgeous floaty dresses, they looked divine.
I loved everything I saw, they all needed to be mine. We then had a real treat, we were professionally made up, I looked in the mirror, I was amazed at what I could see, Eyeliner, mascara, lippy! Was that really me?
Even my chemo curls, which I detest, looked good, I was so thrilled it gave a real lift to my mood. Last but definitely not least; a photo shoot for all of us
It was in the garden and an awful lot of fuss
Was made to get all our photos just right.
We were in all shades of pink, what a lovely sight!
So to finish my poem I just have to say
Thank you, Chai; I had an awesome fun-filled day, I went home smiling and I simply haven’t stopped. A day to remember; I am sure it will never be topped!
Ruth Gomm, June 2023‘Even my chemo curls, which I detest, looked good’
Ayelet Garson, our Style Workshop make-up artist, says,‘Think of make-up as an empowering accessory that can help bring out the confident “you” from within.' She showed clients quick, easy, effective tips focusing on eyes and lips.
Having Jewish ancestry puts you at much greater risk of developing certain cancers. In early 2024, NHS England launches a pioneering BRCA-gene testing programme, which means you can now do something about it
This landmark initiative aims to identify people carrying BRCA gene mutations and potentially avert the risk of this genetic inheritance. Each of us is born with two sets of BRCA genes, known as BRCA1 and BRCA2. Their presence, to a large degree, helps to inhibit breast, ovarian, prostate and pancreatic cancers developing. It’s when BRCA genes have a mutation – akin to a spelling mistake in their coding – that protection against these cancers is compromised.
The isolated nature of the Jewish community – intermarrying, often to relatives – plus population reductions have, over generations, caused a higher concentration of the faulty BRCA genes in the community. The stats spell it out: 1 in 40 Ashkenazi Jews and 1 in 140 Sephardi Jews have a BRCA1 or 2 gene fault compared to 1 in 250 in the general population. It means women with a BRCA gene fault have up to a 70% chance of developing breast cancer, compared to 12.5% for a woman without the mutation; a 45% greater risk of developing ovarian cancer due to BRCA1 and 17% due to BRCA2. Men with a BRCA2 gene fault
have a 25% chance of developing prostate cancer – double that of a man without the gene. A BRCA2 gene fault also increases the risk of breast cancer in men, and both men and women with the gene fault have a greater risk of pancreatic cancer.
Previously, only people with a strong history of BRCA-related cancers were eligible for genetic testing on the NHS. Shockingly, research has proven that this misses up to 60% of carriers. NHS England has partnered with Chai and Jnetics to spearhead the genetic testing awareness campaign and to provide support to the furthest corners of the community.
Nicole Gordon is CEO of Jnetics, which is dedicated to educating the community about Jewish genetic disorders and how these can be prevented. She stresses, ‘This affects all of us, from the nonaffiliated to the ultra-orthodox. It’s not about levels of observance but about our genetic ancestry.'
While the faulty gene does not inevitably lead to cancer, Gordon highlights that BRCA is not a female-only issue. Men and women can have a BRCA gene fault, and
pass these on to their sons and daughters. With every pregnancy for a couple in which either partner has the gene fault, there is a 50% chance the child will inherit this.
For comprehensive information about BRCA, visit Jnetics.org. The NHS test is available to anyone over 18 with at least one Jewish grandparent (Ashkenazi, Sephardi or Mizrahi). A soft launch earlier this year saw over 3,000 people sign up to receive a test. The kit, which arrives by post, contains a simple saliva test, along with an information booklet, genetic test consent and personal details forms. Participants simply post the test back in a pre-paid pack, to an NHS laboratory where the DNA is analysed. The results arrive by letter within 8 to 12 weeks.
The decision to test for the BRCA gene is a very individual and complex one as it affects the person testing as well as their close family members. To support people as they explore the issues, including
Knowing you have the BRCA gene fault offers lifesaving options’
whether to test, a helpline staffed by NHS genetic counsellors and dedicated just for this testing programme has been set up (see next page).
Knowing you have the mutated gene offers life-saving options, yet it also brings a raft of questions. Those testing positive are referred on to their NHS regional genetic centre for ongoing support to manage their situation. The clinical considerations span a wide landscape, explored over the page by Professor Ranjit Manchanda, of the Wolfson Institute of Population Health at Queen Mary University, London. These broadly cover lifestyle, screening and preventative drugs, and risk-reducing surgery. He also highlights fertility options available for those yet to start or wanting to complete their family.
Graham*, 57, tested positive for the faulty BRCA1 gene after his father was diagnosed with prostate cancer in 2021. He is married to Julia, and they have two daughters and a son, in their 20s. Graham joined the Chai support group for BRCA-positive carriers without cancer.
‘I’m thankful it wasn’t a secret in my family that an aunt died of breast cancer and a great aunt, of ovarian cancer. Dad’s prostate cancer diagnosis prompted the oncologist to suggest it was time I got tested – and I did, without hesitation.
married a couple of years earlier. Confronted with when and how to tell the children, I contacted Chai saying, "My wife, children and I all don’t have cancer, but I need to talk to someone." Julia and I saw a Chai counsellor, which was such a helpful resource. The children now know about my BRCA result and are making their own choices about what they do and where they get support.
Alongside these physical and medical aspects, are all the emotional ones. Chai’s BRCA-focused services include genetic counselling and support groups for clients who are BRCA-positive with, and without, cancer. ‘Clients can join at any stage of their BRCA journey and have the chance to discuss the implications of being tested and decide what is right for them and their family,’ explains CEO Lisa Steele. ‘They can talk freely and in confidence about their emotions, fears and dilemmas: how it’s affecting their relationships; how or whether to tell children, siblings, parents. People may have to accept family members faced with the same risk, making different decisions to them. These complexities can be aired with Chai’s expert counsellors in one-to-one and group sessions, all of whom have received additional training from the Royal Marsden and Northwick Park Hospitals Genetic Teams.’
As a result of the BRCA testing programme, more people will turn to Chai for support. ‘This key part of NHS England’s strategy means more lives saved,' emphasises Lisa. 'Greater knowledge on genetics and the importance of early detection can only be encouraged.’
‘The letter confirming I was BRCA1-positive arrived six weeks later, on my birthday. It was devastating news, but when I say this, I mean 98% of my worry is about my children. So little of it is about me and whether I will get cancer – although I’m sure my wife thinks about it. What matters is the consequences for my children, especially my daughters. Because, while there are risks for men, they are so much greater for women.
‘It was a huge burden carrying this information. One of our girls had got
Fiona, 32, discovered a lump in her breast in October 2022 and began weekly chemotherapy treatments a month later. In December she learned she was BRCA2-positive and this year had a double mastectomy. She is mid-way through her immunotherapy treatment and attends the Support Group for BRCA carriers with cancer.
‘For me, finding out I was BRCA-positive was even more shocking, in a way, than being diagnosed with cancer. There’s no history in the family and I didn’t know anyone else BRCA-positive. Being able to speak to people who understand what it is like and have gone through a similar (if not the exact same) experience, makes me feel reassured.
'I joined the support group to talk through my anxieties and hear others’ perspectives. Family dynamics change when you’re BRCA-positive. Hearing the thoughts of a young woman was very instructive and I could test things out in the group that I couldn’t yet say to my children; I put myself in my son’s shoes – at what point would he tell a girlfriend if he was BRCA-positive? Do you tell your friends? We shared information and encouraged each other. It was comforting to know there were familiar faces to support me and that I wasn’t alone.’
*Names have been changed
‘Initially the idea of group support didn’t appeal. I was nervous, I’d never done anything like it before. This completely changed after the first session! Being at the start of my BRCA journey, it has made the world of difference to be able to hear the insights and advice about what’s up ahead from others who are further along. If anyone feels uncomfortable, the facilitator is there to help us through those knotty points.
‘I have made some valuable connections in the group. We talk about what it means to us to be BRCA-positive. I have frozen my eggs so I can hopefully still have children with my long-term partner. When you think nothing good can come of having cancer, Chai has been the place where I feel comfortable, where I can let things out. It’s so positive – in the best sense of the word.’
I could test things out in the group I couldn’t yet say to my children’
The test is available to anyone over 18 with at least one Jewish grandparent (Ashkenazi, Sephardi or Mizrahi)'
Professor Ranjit Manchanda’s work has led to the NHS Jewish BRCA Testing Programme. It has life-changing significance for the Jewish community – and for the population as a whole
Waiting until you have cancer is no way to protect a population from getting it. Traditionally, genetic testing to identify BRCA carriers, has involved accessing high-risk cancer genetics clinics or regional genetics services. The criteria have always been based on having a strong family history of cancer or fulfilling standardised clinical criteria. It’s a complex testing process and can vary regionally and internationally. Would you be surprised to learn that around 60% of BRCA carriers do not even qualify for the family history-based genetic-testing criteria and are missed? And that roughly 90% of Jewish BRCA carriers in the UK remain unidentified despite 25 years of genetic testing across the NHS? That is why, in my opinion, the current approach – identifying a BRCA carrier after a cancer diagnosis is, arguably, a failure of cancer prevention.
With the occurrence of potentially preventable BRCA-associated ovarian and breast cancers 2.5 times greater in the Jewish population than in the wider population, gene testing in the Jewish population can have a major impact in the goal of stopping cancers from developing. There are clear and effective management options for people who have a positive result. For breast cancer these include risk reducing surgery (mastectomy), medical prevention and intensive annual screening with MRIs or mammograms. The removal of the ovaries and fallopian tubes after a family is complete, can prevent ovarian cancer.
Screening trials are available for prostate cancer in men and for pancreatic cancer, too. Lifestyle, contraceptive and reproductive choices can also impact cancer risk and help a couple plan a family. For instance, an IVF approach called preimplantation genetic diagnosis (PGD) allows a fertilised embryo’s DNA to be tested outside the body, to ensure the transmission of the faulty gene is not passed to the next generation.
The opportunity (Jewish) BRCA population testing offers, irrespective of family history, cannot be underestimated. It has been the focus of my research since 2007 and I’ve worked in close cooperation with a large number of Jewish charities, stakeholders, rabbis, religious leaders, and community organisations. Research from our trial so far shows a high uptake of the BRCA-testing opportunity across all parts of the community.
The test can be delivered in a community setting and delivered to homes, making access to it easy, and helping to reduce long-term anxiety and uncertainty. Most importantly, it will more than double the number of BRCA carriers identified. Dare I say, it also saves money for the NHS. There aren’t many interventions in healthcare that save both lives and money, but BRCA population testing in the Jewish community is one of them.
Currently, Israel’s BRCA-testing policy includes Jewish women only. England’s Jewish population is only the second worldwide to undergo population-based genetic testing in a clinical/healthcare setting. It offers a huge opportunity, and I hope the programme will lead to this strategy being incorporated as routine. The Jewish population is an exemplar for others to follow. Indeed, the evidence emerging from the BRCA study has in
large part helped my team receive funding for a research study testing cancer genes in the general population (called PROTECT-C) starting later this year. A huge step forward.
• The programme will launch early in 2024
• The saliva test will be free to anyone with at least one Jewish grandparent
• You must be aged 18 or over
• Speak to an NHS genetic counsellor to ask any questions via a dedicated helpline: 020 3437 6001 Mon, Tues, Thurs, Fri 9am-5pm; Weds 9am-7pm
• For more information, or to register visit jewishbrca.org
Chai services
• BRCA Support Group for those without cancer
• BRCA Support Group for cancer patients
• Individual, Couples or Family Counselling for genetic-related issues
For more details email Charlotte Hildebrand on charlotteh@chaicancercare.org or call 020 8457 3238
Ranjit Manchanda is a Professor at Wolfson Institute of Population Health, Barts CRUK Cancer Centre, Queen Mary University, London, and Consultant Gynaecological Oncologist at Barts and the Royal London Hospital, London. Among many roles, he specialises in populationbased testing, risk prediction, targeted screening, and cancer prevention.
CHAI ISN’T THERE JUST FOR THE PATIENT. WE’RE ALSO THERE FOR THE CARERS, WHO SOMETIMES FIND IT HARDER TO ASK FOR HELP
‘Chai has been there for all four of us through Joshua’s cancer journey’
Deborah Hirshler
‘Pupils supported by a Chai therapist tell me they feel relaxed and free after a session.’
Simon Greenhouse
‘Chai is the charity I wish I didn’t need to know about – and the charity I don’t know what I’d have done without.’
Josh Nash
osh Nash, 24, a special needs teacher, has had support from Chai since last December, when his mum, Hedy, 50 was diagnosed with Central Nervous System (CNS) lymphoma, a blood cancer affecting the brain.
'Mum’s behaviour began to change in mid-November of last year. She’d turn up for work late; forget how to use the shower, and more worrying, how to drive. One day she was sent home from her work as Deputy Head of a special needs school. They said, ‘You’re not yourself.’ And it was true. I went to see her, and she was lying in a strange position, half on, half off the couch. She insisted she was fine but to my dad Jason, younger brother Ben and me, she seemed to be disappearing into her own little world, like a toddler with dementia. We all thought she’d had a stroke. We called an ambulance.
'In A&E, a CT scan showed Mum had masses on her brain. Within two weeks the Royal London hospital confirmed CNS lymphoma. Everyone tells you, ‘Don’t Google it,’ but of course you do. Because hers was a blood cancer rather than a tumour, it was harder to treat and the drugs were extremely powerful. Mum spent 32 days in hospital for the first two rounds of chemotherapy. She was home for a while before going back for rounds three and four. The doctors didn’t give us a prognosis.
'I’m the practical one in the family, so I was doing all the organising. But entering the unknown, I knew I needed all the help I could get. I was frightened and sad. Mum was no longer able to parent, she had to leave the profession she had loved for more than 30 years. The idea that she walked out of school that November and won’t ever go back – that hurts. I remembered a Facebook post about a family I know who were using Chai, so I emailed. Within a couple of days, I was registered and had my first counselling session at the Hendon centre. On my first visit, I thought, "What a magical building", so calming and relaxing.
'My emotions were all over the place. I wasn’t eating or sleeping well. I took three weeks off when it all started, but back at work, my days were long. I’d visit Mum in hospital in the evening, travelling an hour there and back every day. I’d also begun a master’s degree. People were messaging constantly for updates. No wonder some days I didn’t want to speak to anyone. But talking to a counsellor, someone who didn’t know the family, I could be open and honest; say stuff I wouldn’t tell anyone else and process my feelings.
'Finances have been a big worry. Dad has stopped work to care for Mum and deal with the doctors. Louise Crystal, who runs Chai’s Advocacy Service has been amazing, doing the application forms for a blue badge and for the Personal Independence Payment (PIP). My Client Service Manger calls me regularly, at just the right time of day, when I’ve finished teaching. As well as counselling and advocacy, I’ve had massage treatments which help me relax. Thanks to Chai I never feel I am on my own. In April, I took mum to Chai for the first time. She now sees a counsellor and has a lovely relationship with them.
'Mum had a big bash for her 50th birthday in June 2022; by December, 80% of her brain was riddled with cancer. This June, she turned 51 and she’s in remission. We raised £300 from a ‘wear a hat day’ at the school where Mum worked, and more than £3,000 from a sponsored 10km walk she did with friends in July. It’s been crazy year, but with support I’ve managed to get through it and am more resilient and confident. Chai is the charity I wish I didn’t need to know about – and the charity I don’t know what I’d have done without.'
Joshy Hirshler was five when he was diagnosed with a brain tumour in March 2020 at the start of Covid. Chai has provided support to mum Deborah 41, husband Gilon, 44, daughter Rebecca, 12 and to Joshy, now nine.
'I’m a mum and I’m also a doctor. When Joshy was diagnosed, I was anxious to advocate for him and get the best possible care. Doing my own research, and listening to the specialists, I was sometimes caught between what they were telling me and questioning, "Is there a better way to do this?"
'Joshy had surgery for the tumour in March 2020 and could not speak, swallow, hold his head up or walk for six months. Add Covid to this: no visitors, no swapping over with my husband, just me and Joshy in hospital for weeks and weeks on end. He endured endless treatments including radiotherapy under general anaesthetic for 30 days in a row. It was awful. I did not know if he understood what was happening, I just didn’t want him to feel alone or frightened.
'At the same time, I worried about my daughter Rebecca. School had gone online, so she didn’t have the support of her classmates or teachers. My husband Gilon, too, now had to fit in work, bringing me food, taking my washing home whilst worrying about both Joshy and me. During that time, I was unable to look after my own mental and physical wellbeing, constantly vigilant over my precious child.
'Camp Simcha suggested Chai could support Rebecca. Over Zoom, she enjoyed art therapy sessions and found it a great help talking about her worries to someone outside the family. I saw her mature hugely in that time. Gilon also began counselling. It was trickier for me in hospital. Joshy was always being taken for a scan or to have a treatment. However, knowing Chai was there for Rebecca and Gilon was a big reassurance. That was my by-proxy support.
'Once home, I arranged counselling for myself. At first it was difficult and tiring to describe how horrendous everything was… but at the same time it was good to offload to someone impartial, to have an hour to think about me, and to not worry about unburdening or repeating myself if Joshy hadn’t managed his physio too well that week. Chai was so accommodating, timing appointments in the evening, once Joshy was asleep.
'Joshy said his first words at the end of September 2020 and I have a video from October when he’s trying to sing me happy birthday. He could not manage all the words, but he knew what he was trying to say. Since July 2020, music therapy with Phil has been the highlight of Joshy’s week. And the therapy sessions have been a ray of hope. Early on, Joshy couldn’t differentiate between different coloured shakers: one blue, one green. He couldn’t lift them. Over the months, I saw him recognise the colours, pick them up, shake them, and sing "Supercalifragilisticexpialidocious"! His improvement has been my biggest happiness. He still has problems with his balance, handwriting and fatigue, but he is a determined boy who pushes himself all the time despite his difficulties. We’re so incredibly lucky to have Chai in the community.'
Simon Greenhouse is the wellbeing and safeguarding lead at Brooklands, a nonJewish state primary school in northwest London. Chai began supporting the school’s Jewish pupils six years ago.
'We’re a school that is not afraid to ask for support and advice when we need it. Several years ago, we recognised that, for certain situations, such as cancer, we need to call on specialist skills. Chai therapists come in to provide art and play therapy for our Jewish pupils. Some have seen their parents go through cancer; others have had cancer themselves and seen siblings and family affected. So, we know it from all sides.
'We build a relationship with the therapist in relation to each child, so we’re aware of anything that’s happening for them, or that might impact the class. These ongoing conversations allow us to be sensitive to changing situations and give the most effective support. The therapist may say to me, "X had a bit of a challenging session" so we are alert for any verbal or non-verbal signs of distress. We foster a sympathetic, empathetic school environment in which children are taught how to respond to and support fellow pupils. They understand that after a Chai session, their classmate may not want to interact for a while or need some quiet time away from class.
'Cancer can make a child can feel very isolated. Chai’s intervention enables them to learn to process their emotions, understand their feelings, and find a vocabulary to be able to express them; that it’s okay to feel angry or scared or sad. On one occasion, when a child was having trouble comprehending why they felt such anger, the Chai therapist helped to gradually adjust their mindset and develop coping strategies. Pupils supported by a Chai therapist tell me they feel relaxed and free after a session.
'Teachers need support, too, when a child in their class is dealing with cancer. Chai provides training so they know how to approach conversations with the children, the parents and the class. While not counsellors or therapists, the teachers can be there to listen if anyone needs to be heard and are sensitive to what each child needs. All of this would be much more challenging without Chai’s support.
Sharing experiences and wisdom can be a great benefit, as Chai facilitator and counsellor Marie-Anne Dwek explains
What does the Carer’s Support Group provide?
Illness turns a person and their loved ones’ lives upside down and the roles you each played are changed. Carers sense that feelings of resentment and frustration can’t be expressed because it’s so much worse for the patient. In group, when one person speaks, it invites everyone in because they’re voicing something others are thinking but can’t verbalise. Sharing experiences, people learn survival mechanisms and give each other advice. In a safe space, they can say the things they would never say anywhere else.
Describe some of the issues people bring
Frequently it is the fear of unasked-for responsibilities: doing the accounts; running the house; becoming an amateur medic. Navigating new relationship complexities also figure: when a young adult is caring for an ill parent; the intimacy shift when a partner becomes the needy child. Soaking up the emotions of someone who may be angry and depressed, in pain and scared, it’s hard to separate your feelings from theirs. The group helps you unpick what belongs to you and what doesn’t.
What happens in a meeting?
First there is a ‘check in’ – a lot can happen between fortnightly sessions. New group members introduce themselves and share a little about their situation. Someone opens the conversation, and members of the group add their thoughts, and it evolves. I’m quite hands-off, stepping in if there is any undue distress, say if a group member is in a particularly depressed place. Then I can suggest extra support for that person.
Group or one-to-one counselling, which is better?
It’s useful for people to have one-to-one counselling to have some individual space and attention. The counsellor may suggest to a client that they would benefit from being part of a group for several reasons, including feeling less isolated. We live in a world with all kinds of different languages, however, and it’s not always verbal. Talking is not for everyone, but it may be just what someone needs.
‘When one person speaks, they’re voicing something others are thinking but can’t verbalise’
It’s a vexing and persistent question that can play on the mind of a patient on the cancer journey. Consultant medical oncologist, Professor Daniel Hochhauser, has some reassuring answers
Confrontation with diagnosis and treatment of cancer can be frightening and exhausting. Overnight, one enters a new world with its own language and culture – a world one was barely conscious of previously. PET scans, incomprehensible and unpronounceable drug names, procedures such as ‘laparoscopy’ and ‘resection’ are encountered and need to be understood. Anthropology is a field that studies the learned behaviour of people, including languages, belief systems and social structures. Being diagnosed with cancer can be viewed as an anthropological transition –an entry into unknown territory with its own language, emotions and physical sensations. Attempting to
navigate it is a formidable task and understanding what is happening can often be fragmentary and disjointed. Appointments with medical professionals may be unsatisfactory, discussions may be rushed, and the substance not remembered.
For the majority of patients, the process eventually achieves a satisfactory track with a skilled and empathic team of medical, nursing and allied practitioners. Nonetheless, for many there remains a nagging, and potentially subversive, thought – am I getting the best treatment? This is especially the case within the Jewish community. With concerned relatives and international opinions flowing
in, always with the best of intentions, often from the US or Israel, comes the suspicion that this may not be the best path to follow. Is there another – better – opinion?
right for the patient. It could be that a different manner or style of approach is called for – greater sensitivity or longer time spent on discussions. For these reasons, obtaining second opinions may be beneficial, although clearly, they put the system of healthcare under added stress. Incidentally, patients should not be concerned to inform their medical team if they want further opinions; it is their right.
The revolution in cancer care, which is so widely reported, may add to uncertainty. Rather than the uniform standard treatments applied in the past, one reads of personalised, targeted, precision therapies and innovative immunotherapies: see any past or current edition of Chai’s magazine for examples of this. Why am I not receiving these? In fact, despite the undoubted dramatic advances of the past years, there are several cancers in which the treatments rely on classical modalities of surgery, radiotherapy and chemotherapy. Undoubtedly, however, the range of available treatment options has made cancer treatment both more complex and less standardised.
A second opinion may be constructive but can also be a curate’s egg – partly good and partly bad. At its best, and in the majority of cases, it can provide necessary reassurance and confirmation that one is receiving the best care. Additionally, the second opinion can present options that provide alternatives to what is being offered – clinical trials for example. And in some instances, it is not just the substance of the treatment being offered but the way in which care is being administered, that may not be
However, obtaining multiple opinions can also present difficulties. Which do I trust – the first or the second opinion? More to the point is the often-held view that I need the best – or ‘top’ – person to manage my care. In truth, most cancer care is prescribed on the basis of carefully controlled clinical trials and evidence-based medicine. All management decisions in cancer care are made following a multidisciplinary team meeting (MDT), where specialists from all relevant disciplines decide on the recommended treatment. So the model of medicine in which a uniquely wise physician comes up with a strikingly original solution is in fact rare. The metaphor ‘thinking outside the box’ is often used to describe creative, original solutions to medical problems that most physicians are presumed not to possess. In my experience, in most cases ‘thinking outside the box’ only occasionally, and in unusual circumstances, results in any improved and novel strategy. It is generally almost always better to think ‘inside the box’ in order to receive safe, well-evidenced and the best standard of care.
Unfortunately, the obtaining of multiple opinions can sometimes result in confusion. A loss of confidence in the primary team delivering care can undermine morale and increase, rather than decrease, uncertainty as to the right path to follow.
The challenge for cancer care is not primarily to obtain access to the best specialist. For rarer conditions and for expert and very specialised forms of surgery, such access may be valuable. However, the main challenge is for every patient, whether in the NHS or private sector, to obtain the highest standard of care delivered with humanity and compassion. That is a challenge which has been increasingly under strain. It is the reason why I believe an organisation like Chai exists. Not to point patients to the mythical, visionary individual who will provide an answer that others haven’t seen, but to provide the communication which didn’t happen; to offer the psychological and wellness support which is lacking, and to provide the holistic care which is so often unavailable.
Daniel Hochhauser is Kathleen Ferrier Professor of Medical Oncology in UCL and consultant medical oncologist at UCLH Trust. He is Head of the Research Department of Oncology at UCL Cancer Institute and Director of the UCLH Biomedical Research Centre Cancer Theme. His specialism is gastrointestinal cancer. Professor Hochhauser is also a member of Chai's Medical Advisory Panel.
“ Patients should not be concerned to inform their medical team if they want further opinions; it is their right’
“
It is generally almost always better to think ‘inside the box’ in order to receive safe, well-evidenced and the best standard of care’
Our annual matchedfunding campaign last November was bigger, bolder and involved more of the community than ever.
Welcome to the highlights of the Chai Big ImpaCt Community Weekend
Chai means ‘life’, so a Chai Bag for Life was a surefire promotional idea. They were seen at check-out counters in Jewish supermarkets during the campaign.
A load of ‘hot hair’. Children from 19 schools across the land let creativity go to their heads for Mad Hair Day, which kicked off the BIG ImpaCt Community Weekend. A bees ‘nest’, colourful plaits and twists, gravity-defying hair, and the England flag were highlights of the day. The event raises awareness of the Chai in Schools service, which supports children affected by a cancer diagnosis with art, play and music therapy sessions in schools. It also provides expert advice to headteachers, staff and SENCOs in how to respond to the child’s needs and those of their classmates.
In their own words. Captured in a series of films made especially for the campaign weekend, were the voices of children, like Rani (pictured), supported by Chai, highlighting the 63% rise in demand for children’s services. Clients represented the spectrum of ages, and talked about how Chai has moved them from a world that had ‘fallen apart’, ‘a life shot to pieces’, ‘full of scary moments’ to ‘changing the way I view everything’, ‘a 100% lifesaver’, ‘making me feel like a person again’, ‘putting me on a road where my life can progress’.
The word on the street… in the bus shelter, on the bag, the challah, the chicken and even the lunchtime sushi box, was 'ImpaCt'. A total of 15,000 campaign stickers on produce in kosher grocery stores, butchers, and bakeries (and the plastic bags at Carmelli’s and Brackmans), publicised the matched funding campaign, rallying the community to get involved. Everywhere one turned, one was reminded about Chai.
Now it’s Chai in Shuls (and universities). On the Chai Shabbat, more than 100 synagogues of all denominations marked the weekend and the incredible connection between Chai and the community. In Rabbis’ sermons, through testimonies from clients at kiddushim and via leaflets highlighting Chai’s breadth of services, the campaign message was woven into the day. Chai also sponsored the United Synagogue DAF (the weekly email to members) in which Rebbetzin Lauren Levin from South Hampstead Synagogue linked the week’s Parasha, Toledot, to the way Chai ‘stands tall as a candle in the darkness’.
Match that! In a community first, at Brent Cross Shopping Centre, a giant electronic advert for The BIG ImpaCt Community Weekend gave shoppers a colourful countdown to the start of the matched-funding section of the weekend. There was huge excitement as people stopped in their tracks to watch, and the brilliant feedback proved a winning way to reach out.
Party time! On Sunday afternoon, as the community smashed through our targets, more than 100 children, all with a family member supported by Chai, piled into the Hendon flagship for a Chai Kids Family Fun Day. Face painting, jewellery making, photo frame decorating, hair braiding, a photo booth to capture happy memories – and yummy food – made the afternoon fly. Dudley, one of Chai’s pet therapy dogs was on hand for cuddles, too.
Four hours to go, and £110k was still needed to get the campaign over the £3m finish line.
Social media channels were buzzing… as 10pm approached, whoops of elation rang out at Chai HQ: £3,006,503 raised by 275 team hosts and close to 9,000 donors from across the world. Clients, many of whom were themselves team hosts, shared their delight, knowing that Chai could continue to be there for them. One said, ‘This response gives us peace of mind.’ Chief Executive Lisa Steele added, ‘We all know someone affected by cancer. This campaign reached tens of thousands of people who came together to support them this weekend.’ Chairman Louise Hager concluded, ‘This wave of affection shows what Chai means to so many and how it touches their hearts.’ The funds raised will support existing services and the roll-out of the NHS BRCA testing of the Jewish community.
Thursday 30th Nov
• Young Chai Event
Friday 1st Dec
• Mad Hair Day
Shabbat 2nd Dec
• Chai Shabbat
Sunday 3rd Dec
• Matched Funding Campaign
• Kids Party for Chai clients
Monday 4th Dec
• Matched Funding Campaign
• Chai Jewellery Sale & Coffee Morning
For more than three decades, her glamorous, fluid creations have made women feel feminine, fabulous and confident in the spotlight. Angelina Jolie, Cameron Diaz, Taylor Swift, Rihanna, Jennifer Aniston and Helen Mirren have all worn Jenny Packham’s gowns. And in June there were a fair few of the designer’s clients –brides, mothers-of-brides and partygoers – at the Chai Ladies’ Lunch, when Jenny Packham herself was centre stage at The Carlton Tower Jumeirah in Knightsbridge.
To a rapt audience of more than 200 women, the Central St Martin’s graduate told Deputy Editor of the Telegraph
Magazine, Naomi Samuels-Greenaway how she grew up in a family of dressmakers, with her mum, a particular inspiration. ‘Whenever there was any spare time, we would make something. At some point I realised making things could be a job.’ Jenny disclosed how Kate Winslet’s gown for the première of Titanic 3D last year, went ‘from nothing to something’ in four frenzied days when the actor’s original choice of outfit wasn’t working. ‘I’m very proud of that dress. It pulled together all our resources.’ She revealed, too, the nail-biting dress selection process, waiting six weeks to know that Adele chose her design for the 2013 Oscars, when the singer won the statuette for her theme to Skyfall. ‘There’s a really nice story attached to this gown because I later learned that she keeps both the Oscar and the dress in a special showcase,’ said Jenny.
There were insights into how the designer captured her first stellar LA client, the actor Sandra Bullock, that Tilda Swinton is on her client wish list, and her preference for wearing black ‘to keep the focus on the client’. One of three stunning dresses on display, was a copy of the spectacular gold pleated gown worn by the Princess of Wales for the première of another Bond film, No Time to Die, in 2021. Though she couldn’t be sure her design would win the day, Jenny could reasonably bet on it: she is one of the Princess’s ‘go-to’ designers.
Operating in a glittering world of fame and flash bulbs, Southampton-born Jenny retains a charmingly low-key and approachable attitude. She shared memories about her
Adrianne Morris & Gemma Wiseman
One of the dresses on display was worn by the Princess of Wales for a Bond film premiere’
Style, star-studded conversation, and a standing ovation were on the menu when fashion designer Jenny Packham came to the Chai Ladies’ LunchSari Friedman, Bianca Tamman, Sara Vogel, Elisheva Glausiusz, Nomi Grunbaum, Karine Morris Jenny Packham with three of her couture gowns Flowers by Rob Van Helden Naomi Samuels-Greenaway, Jenny Packham, Chai Chairman Louise Hager, Chai CEO Lisa Steele
mother’s breast cancer, which she discovered only after she passed away ten years ago. I was 16. At that time, we lived in a very small house, and she completely hid it from me, probably thinking I would be scared. Now, because of organisations such as Chai, we can talk about cancer.’
Gemma described Chai as ‘part of “my army” of support, there for me and my family, helping my husband and I tell our then three- and five-year-old children; providing counselling and complementary therapies, and amazing classes for self-development and acceptance. When we walk through the door, it feels like a great big hug, you’re in incredibly safe hands; I have felt happy even when I thought I’d never smile again. I’ve been empowered to carry on, being as close to the old Gemma as possible.’
The event raised £120,000 which went towards the Image Resource Service supporting women as they adjust to life during and following cancer surgery and treatment. Jenny wholeheartedly believes that what you wear matters for reasons more meaningful than Instagram ‘likes’. ‘Clothes can lift us, change our mood and open our horizons.’
When welcoming guests, Louise Hager explained how Chai’s advice on clothes, make-up, nails, and hair ‘goes to the core of self-esteem at a time when clients may be feeling extremely vulnerable.’ (See our cover story on our Style Workshop on p6.)
Mother, Adrienne Morris and daughter Gemma Wiseman moved guests to a standing ovation as they spoke with intense honesty about 40-year-old Gemma’s cancer journey. Diagnosed in 2021 with stage 4 bowel cancer that had spread to the liver, Adrienne said, ‘It’s every mother’s nightmare. But while Gemma’s medical team took care of the treatment, Chai took care of all of us as a family.’
On a sun-filled day, new and long-term supporters of Chai enjoyed a delightful lunch by Ben Tenenblat. Peony, rose and wild flower centrepieces generously donated by Absolute Flowers, Amber Rose, Flowers by Miri, Funky Flowers, Lilac & Willow and Rob van Helden Floral Design, spilled across the tables. Everyone took home a skin-boosting gift bag from Elemis. Most of all, guests cherished the strength of a common purpose to enjoy life to the full.
“ Clothes can lift us, change our mood and open our horizons’
Jenny PackhamJenny Hollander, Leah Inglis, Chana Sufrin, Leah Levinson, Chaya Baumgarten, Gitty Freundlich Hayley Ronson, Dame Gail Ronson DBE, Daphne Scheder-Bieschin, Gemma Wiseman Michelle Humphreys, Deborah Wald, Jenny Packham Joan GeorginaLipkin-Edwards, Edwards Ruth Isaacs, Patricia Davidson, Nicola Loftus, Roberta Benscher, Lady Daniela Pears Solange Muna, Natalie Metta, Chaya Raichick, Or Braverman, Ellia Lee Jane Davila, Avital Davila, and Naomi Nevies who gave the vote of thanks Susan Shipman-Zuckerbrod, Lady Morven Heller Flowers by Lilac & Willow
Since 2010, the Chai Medical Clinic has been supporting patients through the most difficult effects of cancer and its treatments. As scientific advances bring new outcomes, Clinic Consultant Dr Rachel Craig explains how this vital resource is adapting
‘It was a ground-breaking idea –a three-way collaboration that brought together expertise from the Royal Free London NHS Foundation Trust, Marie Curie Hospice in Hampstead and Chai Cancer Care. Its remit: to look after clients requiring support through their cancer treatment, focusing on those struggling with uncontrolled
symptoms of cancer or the side-effects of treatment, pain management, help with adapting to physical changes, and advance care planning. At the time it was called the ‘Medical Outpatient Rehabilitation and Palliative Care Service’, which was a mouthful to say but well-named because it really explained ‘what it did on the tin’.
The Royal Free London NHS Foundation Trust had been working closely with Marie Curie Hospice Hampstead for over 20 years, sharing the specialist palliative care knowledge and rehabilitative skills of their health care professionals. Based on the model at Marie Curie, which is to support patients with complex needs, and with the help of Chai’s Medical
Advisors, the Medical Clinic was created. The initiative added an additional layer of care to the wide range of supportive services already provided by Chai. I joined the team in January 2011 as the Palliative Care Consultant.
environment in which to discuss topics including future care and palliative options with clients and their family. Feedback confirms how much clients appreciate an independent person helping them navigate and understand the treatments and support available if their condition should progress. Ranging in age from 20 to 90-plus years, I see clients with a wide variety of issues, diagnoses and presentations, all of whom receive services tailored to address their individual needs.
Hospice with whom we meet to discuss how we can support each other and best deliver care for clients.
In the 12 years I have been at Chai, the outcomes of cancer treatment have improved considerably. Women diagnosed with breast cancer now are 66% less likely to die within five years, compared to 20 years ago*. About three million people today are survivors of cancer and that is set to rise to four million by 2030**.
However, cancer survivorship and rehabilitation can still sometimes come with a cost, translating into severe, highly sensitive and ongoing after-effects of cancer treatment. Peripheral neuropathic or nociceptive pain (resulting from damage to tissues), fatigue, nausea and breathlessness to name a few, are common life-changing symptoms brought to Clinic. Psychological symptoms may include constant living with uncertainty, low mood and the anxiety associated with living with and beyond cancer despite higher survival rates. The Clinic also provides information and guidance creating advance care plans and advice around management and support available at end of life.
On an important administrative and advocacy level, we create electronic care plan records that highlight clients’ wishes, which can be shared with other healthcare professionals involved in their care. When there is so much going on, relieving clients and families of that burden is invaluable. With other Chai services to call upon, the Medical Clinic is a central point at all stages of the cancer journey.
Seeing clients on a weekly basis means I can make fast adaptations to their support programme using both prescribed medication and non-drug treatments, drawing on Chai’s complementary therapists, physiotherapists and counsellors where appropriate. It’s a safe, reassuring
Any medical practitioner involved in the client’s care can make a referral to the Clinic, as can Chai’s Client Services Managers, with the consent of the client and their GP. Electronic communication ensures swift transfer of medical records – so the Clinic is a fast-track channel for joined-up care, able to inform others involved in the client’s welfare of any changes to care and medication.
Chai’s services are responsive and proactive; we constantly seek way to improve what we provide. When Covid blanketed the country, it brought another layer of complexity to delivering care, as it did for all healthcare services. The Chai team adjusted with incredible speed to continue operations, including virtual consultations. We now offer a hybrid model, after an initial face-to-face consultation, where clients can have a combination of in-person and online appointments depending on the need. Changing how we work has allowed us to accommodate more consultations, so we are able to support a greater number of clients. Between 2019-2020 and 2021-2022, we have seen a 39% increase in Clinic appointments. Thirteen years after its inception, the reputation of Chai’s Medical Clinic grows. It is not only well received by our partners at the Royal Free London NHS Foundation Trust and Marie Curie but by other palliative care providers in our area, such as North London
So, what is up ahead? We are constantly considering how to meet the challenges of caring for a growing, ageing population where the incidence of cancer is rising. As oncological treatments continue to advance, we will see an increase in cancer survival rates but an equal increase in those requiring support. Under the expert advice of the Chai Medical Advisory Panel, made up of the country’s leading clinicians and researchers, the Clinic will no doubt expand, doing its valuable work of meeting the need in our community.
* Oxford Population Heatlh: ‘Breast cancer mortality in 500,000 women with early invasive breast cancer in England, 19932015: population based observational cohort study’.
** Macmillan Cancer Support
Dr Rachel Craig is a consultant in palliative medicine working between the Royal Free, North Camden Community and Marie Curie Hospice Hampstead. She specialises in delivering holistic assessment and palliative management of any illness at any stage of a disease. At Chai, where she is a member of the Medical Advisory Panel, her main focus is on cancer patients and working closely with carers, nurses, doctors and other healthcare professionals to ensure people receive optimal palliative care and symptom control.
Seeing clients on a weekly basis means I can make fast adaptations to their support’
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We create electronic care plan records that highlight clients’ wishes, which can be shared with other healthcare professionals'
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The Clinic is a fast-track channel for joined-up care’
The life story of Stanley Lewis z’l is one of immigrant success, generosity, hard graft and heartbreak. With wife Zea, the couple made their mark in the worlds of business and charity. Two of their children, Cheryl and Michael, reflect on their parents’ lives and legacy
Words: Deborah Wald
When you’re Jewish and growing up in South Africa, where you fit into society, who you owe allegiances to, and how you find your place, are fundamental questions you begin to fathom earlier than a youngster in another part of the world.
This is the deep-dive topic of conversation
I’m having with Cape Town-born brother and sister, Michael and Cheryl Lewis. They are Zooming in from overseas to talk about their parents Stanley z’l and Zea (Theodora) Lewis, their unwavering support for Chai, and how that continues to the next generation. ‘Our parents were always involved in the Jewish community. Mum was a long-standing member of WIZO and she and Dad hosted many charitable events. We grew up understanding a close-knit community was central to life,’ says Cheryl, the second of the four siblings: Renee is the eldest, Wendy, and Michael are the youngest.
Stanley and Zea were a glamorous pair on Cape Town’s social scene through the 60s and 70s. Thanks to South Africa’s clement climate, there were regular barbecues, pool parties and tennis matches at the family home. ‘The front door was never locked. It was a very open, very happy childhood,’ says Cheryl. ‘Mum was the more extrovert, telling jokes, elegantly held cigarette in hand. She’d studied drama and even today, aged 95, is a natural performer. Socialising is like being on stage for her,’ continues Michael. On Friday nights and Yomim Tovim, extended family, friends,
and Stanley’s business colleagues were welcomed into a household that Michael says, ‘was Jewish in its very essence. Home felt like it was the centre of gravity.’
As the siblings take this trip down memory lane, remembering weekends at their grandparents’ home in the resort of Muizenberg (popular with Jewish retirees), and days at the beach, the banter between them speaks of a familial affection and ease that has not diminished over time.
which they were taking the country. Nor were you comfortable socialising with the English-speaking South Africans who harboured strains of antisemitism. In a page from that familiar playbook, Jews were unable to join certain golf clubs or social groups, so they started their own. Most of the then 25,000-strong Jewish community had their roots in Lithuania and Latvia, which, Michael says, ‘made for a strong, homogenous character, quite different from Jewish communities in other countries’. While the family was not political with a capital ‘p’, they were on the enlightened end of the spectrum, supporting the Progressive Party which opposed apartheid. ‘Life was segregated and there was little social contact, though of course there was considerable interaction in the workplace. When Mandela was released, the Afrikaners finally realised it was over.’
But there are more layers to this idyllic picture and Michael’s insights paint in the detail: ‘Remember, the Jewish community was a minority within a minority white population. That was split between Afrikaners who were the dominant political class, and the English. Jews were somewhat isolated when apartheid began in 1948; you didn’t feel entirely comfortable socialising with the Afrikaners given the direction in
Carving out a path around the host nation’s constraints, the Lewis family nevertheless became one of South Africa’s stellar immigrant stories. One generation back, Meyer Lewis arrived in Cape Town from Latvia, and founded a furniture company in 1934, which was listed on the Johannesburg Stock Exchange by 1946. Stanley’s entrepreneurial flair led him into fashion retail in the late 1950s, transforming Foschini, a struggling fashion company, into one of the top 100 companies in the country, employing tens of thousands of people.
Stanley also ran the Israel-based Peltours Travel Group, which encompassed the
Magen Insurance Company. This was a signifier of his and Zea’s deep commitment to the country they visited many times. ‘Both generations were striving; making good by working hard. They were very purposeful in their endeavour,’ says Cheryl. Stanley passed away in 2009 and now Michael chairs the Foschini Group, which incorporates fashion, sports and jewellery brands, shopping centres, a hotel, property and investments. His own philanthropic contributions include funding a Professorship of Israel Studies at Oxford University and chairing The Institute for Strategic Dialogue, a nonprofit organisation aimed at countering extremist, polarising politics.
A seemingly charmed existence, of course, is never the full story. ‘Dad took life more seriously than Mum. He had big responsibilities,’ says Cheryl. One of five siblings, Stanley was the youngest of three boys. Tragically, both older brothers died in their early 30s. In 1950, one was killed in an accident while piloting his own plane. Just six weeks later, the other brother died of a heart attack. Stanley was still in his 20s. Four years later, a favourite brother-in-law perished in one of the Comet aircraft’s illfated early flights. ‘Dad suddenly became the eldest boy, the only family member left in the business, with three widows to look after,’ explains Michael. ‘I can see now how that carefree young man became more sober. He was determined to protect everyone dear to him. Those events shaped him.’
Such heartbreak could explain Stanley’s love of chazanut, which was the theme of a concert held at St John’s Smith Square, in November 2022, to mark what would have been his centenary year. ‘I think our dad’s appreciation for chazanut was part of his yearning to be moved. He was a soulful and passionate man and this music went very deep with him.’ Held in aid of Chai, the programme put together by Zea and the children, featured the celebrated chazanim Steven Leas, Simon Cohen and Colin Schachat (known as The Jewish Harmony Singers), The English Chamber Orchestra, pianist Raymond Goldstein and conductor Marc Temerlies. ‘Since our father died of cancer,’ continues Michael, ‘it was fitting to do this for Chai.’
From top: Stanley and Zea often hosted business gatherings at home; Stanley receives an honorary degree from Bar-Ilan University in 1982; a family shot from the 60s; celebrating 60 years of marriage with family; Renee, Zea, Cheryl and Wendy at the Chai Spa Day; Michael and Lady Kitty Lewis, Louise Hager, and Cantors Steven Leas and Simon Cohen at the concert in memory of Stanley Lewis z'l last year.
One by one, London became home to the Lewis family from 1977 onwards, when in the shadow of the Soweto uprisings in South Africa, the UK promised greater stability. Initially, they all lived at The Montcalm hotel near Marble Arch, and joining the nearby Central Synagogue, Michael remembers the novelty of meeting families that had been in one place for more than two generations. Seeking out further connections in the Jewish community eventually led Stanley and Zea to Chai. ‘Mum and Dad were absolute partners in their commitment to this special organisation, which was all about alleviating human suffering,’ says Michael. After attending a Chai fundraising dinner in 2003, the couple became Patrons, giving Chai the invaluable security of yearly donations.
A year after Stanley passed away, a children’s play therapy room was sponsored in the Hendon centre in the names of Stanley and Zea Lewis. ‘It was the first thing we did after our father’s passing and recognised our parents’ connection to Chai over the years. Mum, in particular, wanted it to be about family support,’ says Michael.
That same year, Cheryl and her husband Stuart made their own commitment to Chai by hosting a Spa Day at their North London home. During the day, guests sample the wellbeing treatments so essential to clients and hear from those being supported by Chai’s services. ‘I’d been to events and knew friends who volunteered but I was keen to introduce more people to Chai,’ says Cheryl. ‘They couldn’t believe the breadth of the services and the expertise of the organisation.’
Growing up, all the children were fully aware of the privileges they were afforded. ‘But there’s another side to the equation,’ says Michael. The Stanley and Zea Lewis Foundation is synonymous with philanthropy in South Africa, Israel and the UK. ‘We were, and are, very conscious that life needs to be about something more than oneself. That’s the legacy that remains with each of us.’
‘Dad suddenly became the eldest boy, the only family member left in the business, with three widows to look after’
‘A year after Stanley passed away, a children’s play therapy room was sponsored in the Hendon centre in the names of Stanley and Zea Lewis’
Ivor Baddiel is best known as a writer of light entertainment scripts for TV, including the BAFTA Awards and The X Factor. He’s also a children’s author and workshop leader for children and adults. Who better to help clients explore their creativity with words? We nabbed him for a Q&A after class
You know, the word is barely mentioned. There’s no cancer focus, it only comes up if someone has an appointment and won’t be there the following week. This is one and a half hours of escapism – being in the present through writing, putting the focus elsewhere, doing something creative and a little bit challenging. It’s a Jewish group, so obviously there is a lot of chat – with tea and biscuits!
Each week has a different theme: writing for TV, developing characters in fiction; gag writing; Jewish story writing; story structure. The way you go about each one differs. From the start, I say, ‘There are no rules. I give you my tips, see if they work for you.’ There’s no pressure to produce a finished piece. I set tasks but you don’t have to read your pieces out.
I believe everyone is creative. It’s a question of accessing it and getting it onto the page. There’s no magic wand, but I’d say be curious, ask questions. The author, Stephen King, says, ‘Books are like archaeological finds. When you unearth a jug, it’s encrusted in dirt. You chip away until you reveal its original beauty.’ That’s a lovely analogy.
In the workshop about developing characters, we talk about somebody who’s caught cheating at something. How will a confident person react, a jealous person, a criminal, a brave person? Consider physical attributes: old/young, short/tall; clothes; distinguishing features. What about personality traits? Happy/
shy/quick to anger. What do they like to do and why? Skydiving because they like excitement or stamp collecting because it’s calming. What’s their job? A quiet one because they work in a library; a noisy one because they work in a school. Do they make friends easily? Using these pointers, clients create a character and set them in a scenario: they meet an alien; they find a bag containing £100k; a friend tells them a big secret.
How does someone find their funny bone?
Laughter really is the best medicine. In comedy week, we look at five sketches and rank them from least to most funny. Everyone’s order is different, proving there’s no right or wrong. I ask clients to write about the funniest thing that’s ever happened to them, either in script or prose format.
I personally love riddles and lateral thinking problems because they challenge your assumptions and you have to misdirect your thinking, which is great for accessing creativity. Here are two of my favourites. Answers at the bottom of the opposite page:
Riddle #1 Someone’s pushing a car round the corner. They come to a hotel and they find they’ve gone bankrupt. Why? Clues: don’t assume it’s a real car, don’t assume it’s a real hotel…
Riddle #2 Mummy, Daddy and baby worm are wriggling along the ground. They come to a mound of earth and wriggle into the mound, separately, and wriggle out separately and carry on. A few meters away, baby worm turns back and says, ‘Oh, look, two holes.’ How come? Did that happen? Tips: Ask questions. Don’t go for a logical answer.
Writing can be a challenge. How do you encourage people to put their words out there?
This tip works for me. I tell myself, ‘Nobody’s watching. It doesn’t matter what I write.’ I jot down any old rubbish to get the cogs turning, take a step back and look at it. I might hit delete but more likely, I’ll see an idea and think, ‘Actually, that’s not bad.’ Then you’re off.
What is Jewish story writing?
We are the ‘People of the Book’, storytelling is in our culture, we have such characters, such conflicts. I give clients four set-ups around a Jewish theme: it’s Seder night and someone’s stolen the afikoman; Elijah actually turns up; at Chanukah, the latkes bestow superpowers on whoever eats them; the camels are late for Noah’s Ark and might not make it. Everyone chose Seder night and wrote short stories. Given the limited time in class, I was very impressed.
How did you connect with Chai?
My friend Michael Leventhal and I are writing a book for PJ Library called Ben’s Bonkers Bar Mitzva h. Michael produced Babka, Boulou & Blintzes, a cookbook to raise money for Chai after his family was supported by them. I’d had the idea with friends Eddie Gershon and Howard Robinson to do Simchas of the 70s, honouring the funniest, most ludicrous, photos of bar and bat mitzvahs, weddings and parties. Michael suggested we do it for Chai. When I visited, I asked if there was a creative writing workshop and Louise and Lisa said, ‘No… not yet.’ The rest, as they say…
What were your feelings about teaching in a cancer setting?
I was nervous. I have health anxieties, which are probably average for a Jewish man of my age. But when I was shown round… what an amazing space, so many activities and ways to be supported. It’s entirely non-judgmental: an open, welcoming place to everyone.
In 2022, Howard’s wife Sharon was diagnosed with bowel cancer and Howard underwent heart surgery. He is now his wife’s main carer.
‘At times life became very dark. Last year my head was all over the place. I needed someone to talk to and the counselling at Chai has been amazing. I’ve enjoyed writing short stories since childhood, I thought Ivor’s group would take my mind off everything.
‘He’s a fantastic tutor. We’ve explored different writing styles and techniques, including TV scripts and planning a book: it was fascinating developing characters.
‘The week we did comedy writing, I got my sense of humour back. I had forgotten how to laugh. The course has given me a new perspective and faith in myself. Problems don’t go away: Sharon still has side-effects from treatment and I am still in constant pain. But last year, if you’d spoken to me, an angry man would have answered you. This year, thanks to Chai, I’m a different person.’
A screening in 2021 led to Miriam’s cervical cancer diagnosis. She had an operation to remove her cervix, helping her avoid radiotherapy and chemotherapy.
‘I’ve been really lucky. I delayed my cervical screening because of Covid, but thankfully the cancer was still picked up early. Everything happened so quickly, and I was incredibly anxious. After my operation I started rehab with a physio who mentioned Chai to me.’
Simchas of the 70s by Ivor Baddiel, Eddie Gershon and Howard Robinson will capture the decade of giant lapels, Frenchified menus and verbose toastmasters. Ivor (and brothers Dan and David) were Bar Mitzvahed in the 1970s.
‘My mother’s father was the only regular shul goer, so we kept an eye on him during the service. When he stood up, we stood up. At one point he got it wrong, and the whole of the front row stood up. Nobody else did.’ A party that evening saw 60 guests crammed into the family home. The next day, Ivor had 15 friends round to watch a cine film of the 1966 World Cup final.
So, delve into your albums now and upload your contributions (photos, menus etc.) to simchasofthe70s.com
The cancer and the treatment were a huge interruption in my life. To help my recovery, I saw a Chai nutritionist and had massage, which was so helpful. Chai rang me about the creative writing course. As it happens, I teach creative writing to children and have written some children’s fiction. But since the cancer, I’d found it difficult to write – my confidence had been knocked. This was the ideal way to ease back into writing and resume my normal life.’
‘I began to find a voice again. I enjoyed the informality; everything struck the right tone; Ivor was a really supportive teacher. I’ve done workshops before, but this was such a different context in which to write. A huge amount of caring goes on at Chai and I felt such support and empathy in the group. Exercises like writing scripts for The X Factor and the BAFTAs made me feel, “I can do this”. I’m in an improv comedy group and there’s a show coming up. You always need a host and I’m usually scared. Now I feel not only can I do it, I want to do it!’
For details of the Creative Writing course, please contact Charlotteh@chaicancercare.org or call 020 8457 3238
Janet, 63, turned to Chai while going through a mastectomy, chemotherapy and radiotherapy for breast cancer. As well as the art workshop, she has support with counselling and reflexology.
‘Painting helps me forget my illness and allows me to express myself. When I was having chemotherapy, Chai arranged for a volunteer to take me to and from them, otherwise I wouldn’t have been able to go. I enjoy the gentle, physical action of painting and it eases my discomfort. The workshop is informal, and Chava is the most non-judgemental teacher. Her feedback is always helpful and never patronising. The friendship and peer support – being a help to others and being part of the Jewish community, –has been very special.’
Rochelle, 58, had a hysterectomy and chemotherapy after being diagnosed in 2021 with ovarian cancer. She attends art workshops, and has lymphatic drainage, reflexology and Indian head massage at Chai.
‘Going into the art workshop at Chai each week is magical. It makes me feel so positive, partly because I never thought I’d be any good at it – I couldn’t draw at school. Now I enjoy working on canvas, seeing a painting develop, using vibrant colours which are so good for the senses. It’s a powerful process, and by the time I leave, I feel completely uplifted. I am very proud, too, to see my paintings on display in Chai’s reception area!’
Rama, 56, has been supported by Chai through recurrent breast cancer over nine years. She has counselling, reflexology, Pilates and treatment for lymphoedema and now attends the art workshops.
‘Coming to the art workshop is like entering a different world. I love the experimentation it involves, taking an image or idea, using colour to transform it. Sometimes I step back, look at the results and think, ‘Wow! I made that!’ I’ve never painted before now. It makes me switch off from everything that’s stressful. Chava’s warmth brings so much to our friendly group – we talk, we unburden ourselves, all while being advised and encouraged to make something meaningful. What can I say? It adds to my life.’
Stephanie, 59, was diagnosed with breast cancer just over a year ago. Chai supports her with counselling, reflexology, art workshops and the gym.
‘I enjoy the whole experience of being creative in a caring, relaxed environment with others who are in the same situation as myself. The workshop helps me block out everything else. Chava encourages creativity, trying different mediums to express yourself and ways to improve your technique. I even sketched while on holiday this summer, which I haven’t done for a long time. Chai is my place of sanctuary, my lifeline in difficult times. Its support has been invaluable in my recovery.’
Artist Chava Erlanger is a one-woman energy grid, powered by a purpose to help people. The Israeliborn 47-year- old, one of 11 siblings, grew up in an artistic household in Jerusalem where the Israel Museum was her ‘second home’. She speaks passionately about the value of therapeutic art workshops for people with cancer or dementia, stroke patients, young offenders, descendants of Holocaust survivors, and those experiencing stillbirth. ‘Art is a form of non-verbal communication. When it’s hard to talk about your feelings, painting helps you explore them. That might be an expression of chaotic, dark feelings or a focus on beautiful things.’ In her art workshops at Chai in Manchester, Chava has noticed that holiday scenes are a favourite theme. ‘It’s not art therapy but the creative process is therapeutic,’ she explains, ‘and as clients
relax and connect to their feelings, talking may follow.’ Often, the starting point for a painting is Chava’s box of art images. Clients settle on something that resonates and her input on colour, composition and effects gently nudges them towards representing what they want to say in paint. She stresses it is not an exercise in perfection. ‘It doesn’t matter what you put on paper. The only requirement is an open mind and the ability to hold a pencil or paintbrush. I want people to realise they can do anything, there’s no expectation – just be yourself.’ When cancer stops you recognising who you are, and so much is about scans, treatments and tests these art workshops are a vivid, empowering way to bond with who you are.
For information on the Manchester Art Workshop, please email amanda.newdall@chaicancercare.org
For Art Workshops in London, email charlotteh@chaicancercare.org
helps me forget my illness'
Janet
Wstep to advance the best way to treat a particular medical condition. While laboratory experiments give us some information, they only go so far. To know whether an approach will be useful in real life situations, it has to be tested on patients with the condition. In my field of myeloma, I work primarily on drug treatments for cancer but the same principles apply for trials of surgical techniques and radiotherapy. Trials can also look at the role of non-medical treatments such as psychological support or physiotherapy, which play a vital part in cancer management.
We’re used to headlines promising miracle cures but, in reality, most trials provide more gradual progress in improving treatments. Although these can seem small, over time they translate into significant advances in cancer care.
Some trials investigate new cancer drugs; others look at new doses or combinations of existing drugs. There are drug trials offered to patients who have already been treated with standard drugs and have had a relapse of their cancer, and others looking at which are
the best drugs to use at the start of treatment. The most common type of trial is designed to see whether a new treatment is more effective than the current standard treatment, in terms of curing the cancer, than keeping it in remission, and allowing patients to live longer. Others may focus on improving quality of life or reducing the side-effects of treatment.
All the progress that has been made in producing the cancer treatments we have today is based on information from previous clinical trials. Each reveals information such as which drugs are most effective and cause the fewest side effects, the most valuable combinations of drugs to give, and how long to continue them for. Trials that provide good results for a small number of people today, lay the foundation for the largest number of patients to be successfully treated in the future.
No one should ever feel under obligation to join a trial… and they can leave early if they wish or if their circumstances change’
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It’s important to caveat however, that though patients in a clinical trial may benefit from getting access to newer or more effective treatments, there are no guarantees. Sometimes a trial does not produce the hoped-for result and patients and their families need to prepare for that eventuality. That’s why the support system that surrounds a patient on a clinical trial is so important. The medical team running the trial will clearly explain the likely outcomes, and will be able to discuss further treatment options if the trial does not provide the hoped-for benefit. The priority for all patients on clinical trials is always their welfare.
details of trials that may be suitable for a patient’s condition. Equally, should the patient or their family hear of a trial that may have potential, they can flag it to the medical team.
If you and your cancer specialist feel that a clinical trial may be appropriate, you will be given some initial information. This can be complex, so the medical team running the trial will give you opportunities to ask any questions about the trial treatment, how it compares to standard treatment and what additional hospital visits and tests may be needed. During the time that you are in a trial, the doctors and nurses running the trial will normally act as your medical team and coordinate all aspects of your cancer care.
Even after the laboratory research has been completed, it can take about 10 years before a new drug or treatment combination has been sufficiently tested for safety and effectiveness to be made available for general use. The process for cancer drug trials is traditionally divided into three phases.
Phase 1 trials involve small numbers of people. The goal is to find out whether a drug can be given safely and what the common side effects are. This stage may also give some initial information as to how effective the drug is.
Phase 2 trials test the drug in a larger group of patients and look at how effective it is in shrinking the cancer, increasing cure rates and prolonging patients’ life spans.
If a drug or combination has shown promise in these earlier phase trials, it may proceed to a third phase.
Phase 3 trials test the new approach against the current standard treatment, to see whether it is more effective in a direct comparison. These trials may be ‘blinded’, meaning both patients and doctors are unaware of which treatment a patient is receiving, although in other cases this may not be practical. This method is important as it provides a less biased assessment of how effective the new treatment is.
Phase 3 trials should be randomised, when patients are allocated randomly to the new treatment or the standard (‘control’) rather than through patient or doctor choice. This is vital in ensuring that any differences between them are due to the treatment itself, and not some other factor. Since they were developed in the 1940s, randomised controlled trials (RCTs) have been the gold standard for assessing new treatments, and allowing us to clearly identify which treatments work and which don’t.
Not all patients are suitable for taking part in a trial and it’s at the discretion of the medical team to suggest a relevant trial that is running at their hospital or at another that is a good match. Many cancer charities such as Cancer Research UK also have
In the UK, there are strict regulations for clinical trials, to ensure they are carried out in a safe and responsible manner. Before they begin, all trial plans (or ‘protocols’) are reviewed by medical experts, as well as a medical ethics committee. This means that, as well as checking that the trial is asking a relevant medical question, it ensures patients are not exposed to a significant risk to their health and their care is not compromised in any way (for example by missing out on standard drugs that may be more effective).
Ultimately, whether to enter a trial is the patient’s decision; there will likely be extra hospital visits and possible side effects. While it’s expected that a patient will remain on the trial for the duration, no one should ever feel under obligation to join… and they can leave early if they wish or if their circumstances change.
When all the information from the trial has been processed and analysed, it will normally be published in a medical journal or presented at a medical conference. It should be available to the public and you can ask the doctors treating you what the results and conclusions were.
Clinical trials are often the final piece in the treatment puzzle, advancing scientific knowledge and the prospects of patients to survive – and thrive – beyond their diagnosis.
Dr Jonathan Sive is a consultant haematologist and the clinical service lead for myeloma at University College London Hospital.
He is an active member of the UK Myeloma Research Alliance where he is involved in the planning and management of national clinical trials. He is also an executive member and education lead of the UK Myeloma Forum where he coordinates myeloma management and guidelines at a national level.
Dr Sive completed his specialist haematology training at UCLH and carried out a PhD in molecular haematology at Cambridge University. He remains engaged in a variety of clinical research projects and his work has been widely published in peer-reviewed journals and textbooks. He is an active member of Chai’s Medical Advisory Panel.
Clinical trials are the gateway for modern cancer treatment and research’
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In Japanese, it literally means ‘finger’ (shi) ‘pressure’ (atsu). The practice uses the traditional Eastern meridians or energy pathways around the body, to help lessen the physical and emotional consequences of cancer treatment and surgery. It’s one of the few therapies that can continue during cancer treatment (with permission from the client’s medical team). Incorporating craniosacral therapy, physiotherapy and osteopathy, it’s a gentle, all-round mind and body treatment, equally effective for non-patients dealing with a loved one’s diagnosis.
Unlike Western massage where the practitioner’s focus is on a muscle or knot, in Shiatsu I work to trigger the body’s own healing powers. By activating the subconscious parasympathetic nervous system, clients are better able to rest, digest and process everything that is happening to them.
How can it help?
The impact of a cancer diagnosis – and its treatment – can be traumatic. We can become anxious. Our fight-or-flight response kicks in and we’re on high alert, even though we may feel exhausted. Our breathing can become shallow and our heart rate speed up, our body may feel tense – particularly the digestive system – and function less efficiently. Shiatsu doesn’t aim to take your mind off what is happening in life. Rather, the pressure point work helps you reach a state of relaxation and safety so you can notice and acknowledge what you are feeling and allow the body to let go of what it is holding onto.
What happens during treatment?
The client lies on a massage table wearing comfortable clothing. I’m concerned with
what is happening in the present. What do they want from the session? Where is the ache, the upset? Being able to place it somewhere in the body, for instance in tight shoulders, in a nervous stomach, helps connect the physical to the emotional response. Using the palms of my hands, I ‘read’ the meridians, release the stuck parts and nourish depleted areas. Sometimes my hands are still, other times, I move them more swiftly. The attention I give each area lets the client notice and release the holding of tension. At the end of a treatment, they frequently feel lighter and looser all-round.
Garry Horne, says:
I’ve had two operations for prostate cancer, in 2019 and 2021, and part of the treatment has included hormones released into my system via a pellet inserted under my skin. Even nine months on, I’ve been shocked at the havoc this has caused me: hot flushes, swelling and distortion around my body, constant tiredness and moodiness.
Shiatsu is helping control so many things. It’s curious how the pain is in one place but the release from it happens elsewhere. I feel both physically and mentally better after a session, lighter in spirit and the discomfort of being bloated and swollen is lessened. Along with the other services I use, including counselling, one-to-one fitness and the men’s support group, Shiatsu is helping me to come to terms with what’s gone wrong in my body and how to cope.’
For more information about our Shiatsu service, please email charlotteh@chaicancercare.org or call Charlotte Hildebrand on 020 8457 3238
Now’s our chance to cheer and flag wave for the bakers and bikers, dancers and golfers as we thank our fantastic supporters who fundraise and organise events with such creativity and dedication – a Chai five to you all!
Celebrating a decade of gorgeous gifting, organisers of the eagerly awaited Rosh Hashanah Gift Sale pulled out all the stops for this special anniversary – this time raising over £32,000 for Chai. Dedicated supporters came from far and wide to the flagship centre in Hendon with one mission: to shop till they dropped. Now there’s a win-win!
Ten years has seen this much-loved, ever-ambitious event go from strength to strength, this year buzzing with over 25 vendors selling an eclectic mix of clothes, jewellery, homeware, Judaica, flowers, hats, and a range of other fabulous gifts.
Of course, any Jewish event is only ever as good as the refreshments on offer, and visitors were certainly not disappointed, thanks to Ben Tenenblat’s iconic gourmet street food truck, Crave, which he brought out of retirement just for Chai, Piu Gusto’s Roman-style pizza van and Oh Brown Bear’s iced coffee and cookies.
Event Committee Co-Chairs Debra Zender and Julia Abrams said: ‘After a few challenging Covid years, we were delighted to hold our annual Gift Sale at its regular, well-loved capacity. There was a fantastic atmosphere inside the building, and it was lovely to see a steady stream of shoppers all day.’
Of this ‘extra special occasion’, Chai’s Chairman Louise Hager praised both the fundraising efforts and the opportunity it gives ‘for many to visit Chai for the first time and experience the special atmosphere that has such a positive effect on all those who turn to us.’
Whole-hearted thanks go to our generous sponsors, Roundtree Real Estates and Tony Page, who once again gifted 300 of his famous honey cakes; Grosvenor Rentals, CST for their security on the day, and all the stall holders who kindly gave a percentage of their takings.
Aiming to reduce throwaway fashion while collecting funds for Chai, four Hasmonean girls – Sophia Alexander-Passe, Ellie Marantz, Shani Levy and Talia Sacks – set up the ‘Clothes To Show You Care’ week-long event at the school, inviting people to bring in their old clothes and sell them. A smart idea indeed as £150 was raised, which went towards the Image Resource Service, Chai in Schools, Home Support Service and BRCA Support at Chai.
Wear a Hat Day at Oak View School in Loughton was a huge success, thanks to Josh Nash, who raised £300 for Chai. Builders’ hard hats, baseball caps, zany zebra toppers and pink and red fluffy buckets styles were all spotted, ensuring a day of colourful, light-hearted fun. You can read Josh and his mum Hedy’s story on p13.
Art exhibitions are a hot ticket these days as was proven when more than 500 people attended the first Kinloss Art Fair since before Covid. Awash with vibrant art, the event was hosted by Yvette Kamlish, Cordia Ezekiel, May Sinclair, Susana Ross Cohen, Fortunee Maltz, Lisa Harrison, Nicole Greenwold, Keith Graham and Jonny Deal. They said: ‘Every year we select a different charity, and we chose to support Chai this year as so many of us have had close family and friends affected by cancer. We are very proud of raising £4,000 from our supporters so that Chai can provide services to so many in the community.’
A 90-strong ‘year group’ turned up for class on time and with their A-star brains in gear for the Forever Chai
‘Back to School’ themed quiz! The sell-out event at Bury Shul – led by a committee clad in school uniform – delivered a hearty helping of nostalgia and even heartier helpings of school pudding, served by dinner ladies!
‘Head teacher’, Chai’s Community Fundraiser in the Northwest, Jilly Berens, led an inspirational ‘assembly’ where she spoke about the vital ‘Chai in Schools’ programme, currently provided in 23 schools across the UK. Then the ‘pupils’ were put through
their paces by Quizmaster Adam Cole Further highlights came courtesy of 18-year-old Joey Levene, who produced keyrings made by the ‘pupils’ filmed in front a green screen with a school desk and chalkboard. Ed Shaerf, kindly donated chocolate puddings with sauce and jam and custard sponge cakes, both a lot tastier than we remember back in the day! The winning team ‘Blue Moon 30’ took home winners’ bragging rights and a mini trophy each. ‘Head teacher’ Jilly reported that the all the ‘pupils’ behaved very well and raised an impressive £3,000
Nutritionist Susan Fruhman and hypnotherapist Hayley Leigh led a Nutrition and Wellness Seminar in Leeds, aiming to teach attendees how to lead a healthier lifestyle – particularly how to avoid or replace certain high-sugar foods. More than 30 guests also learned some relaxing breathing techniques, and enjoyed drinks and refreshments at the MAZCC, the Leeds Jewish Welfare Board centre.
To celebrate the life of the businessman extraordinaire and generous benefactor on the centenary of his birth, the family of Stanley Lewis z’l organised an unforgettable evening of song at St John’s Smith Square, featuring Jewish chazanut gems, popular classics, and Broadway hits. World-renowned chazanim Steven Leas, Simon Cohen , and Colin Schachat , aka The Jewish Harmony Singers were accompanied by the 30-piece English Chamber Orchestra and pianist Raymond Goldstein under the baton of Marc Temerlies . The stunning evening of entertainment was held in aid of Chai and attended by more than 250 people from the UK, Israel, France, the United States and South Africa.
Read more about the Lewis family in our profile on p24.
It was 10s all around for the Strictly 60 Dance-a-thon women who decided to mark the arrival of their milestone birthdays by taking part in an eight-hour dance-a-thon. The 12 participants – all sporting bright pink tutus – raised over £20,000 for Chai Cancer Care and Mustard Tree, the Manchester homeless charity.
Dancing the night away to a mix of chart-toppers and well-known classics from across the decades, local DJ and singer Mozz Abrahamas was behind the decks, while local Bollywood dance teacher, Anna put the ladies through their paces, too! The intrepid troupe consisted of Gerry Singer, Debbie Davies, Suzy Gellman, Tracy Sherman, Lynne Saville, Michelle Cohen, Caroline Levine, Janat Warner, Michaela Gardner, Annette Foxler, Michelle Haffner and Michele Lewis.
The group also welcomed centenarian Jennie Nivern and 90-year-old Joan Sherman, who joined her daughter, event organiser, Tracy Sherman, on the dance floor. Tracy said: ‘We couldn’t believe how quickly the day passed and I am so delighted that, as a group, we have been able to raise so much for these worthwhile causes.’ Even Strictly’s Craig Revel Horwood wouldn’t find fault with this remarkable achievement!
Twenty-eight ladies learned the art of making sushi at Chai’s ‘Sushi Masterclass with Codi’ in the Manchester centre. Everything from knife skills to sushi rolling and understanding the delicious ingredients was included. The event culminated in a technical challenge judged by Codi, in which participants had to create a rainbow roll. There was also an opportunity for guests to be shown around the Centre.
Chai Northwest Community Fundraiser Jilly Berens said: ‘It was an amazing night, and everybody was thrilled with their delicious sushi creations. Guests asked if we could put another one on soon.’ The event raised £1,000 and brought new faces to Chai, ensuring that more people know about its services.
The enthusiasm of Lynne Silver and Andee Roback knows no limits as they organise a full and varied programme of entertainment, every fortnight, which never ceases to amaze. Ably supported by regular volunteers, speakers this year have included Gillian Walnes Perry MBE who spoke twice; about the legacy of Anne Frank and about afternoon tea traditions; Lynne Bradley on Jews in musicals, and Raffi Berg, author of Red Sea Spies, about his Netflix film The Red Sea Diving Resort.
The Winter social party saw clients tap, waltz and jive the afternoon away –flourishing some hot pink feather boas as they danced. As ever, they enjoyed a delicious afternoon tea and the smooth vocals of Jonny Moses who was back by popular demand for the Summer Social Party when they did it all again! If an idea’s good, why not do it twice?! More music, dancing, chat, and cakes. We hear clients are eagerly awaiting the Chanukah party with chazan Jonny Turgel – and, of course, yummy doughnuts…
1939 remembered… Andee and Lynne were also the power couple behind a noteworthy fundraising night. Titled Dear Phylis, it was the true story of a north-west London Jewish girl: her loves, her life and her family, told through her letters and diaries from 1939. Five years in the making, film director and documentary film winner at the Sundance Film Festival Marc Silver said: ‘Well done ... very touching ... a story of the very best in human dignity and love, set against a backdrop of the very worst of humanity.’ The evening raised £1,668.
A fantastic turnout thronged through the doors of the Lowry Cinema to see the Manchester Chai Girls screening of the Whitney Houston Film I Wanna Dance With Somebody. While they viewed the songstress, guests enjoyed goodie bags filled with popcorn and sweets. Plenty of raffle tickets were snapped up, too, raising £1,215 on the night.
Around 100 young professionals danced and drank the night away at Amano Bar in Covent Garden. Popular DJ Jon Stone spun crowd pleasers all evening at the exclusive event, which raised £2,000 for Chai’s vital services. Caroline Tunkel, Chai’s Community Relationship Manager, said: ‘It's so exciting to re-launch our Young Professionals’ events. This is more necessary than ever as we see the number of younger people needing to turn to Chai increase.’ Big thanks to the DJ, Amano Bar and Megabooth for once again supporting Chai with the donation of their fantastic photobooth.
Chai’s staff never need a reason to make challah… and are always ready to ‘rise’ to the occasion… which is why we spent Mitzvah Day this year baking and braiding for our wonderful clients. Rest assured, there were happy smiles (and delicious aromas) all around the centre that day!
Challah was on the bread-making menu, once again at the Andy Sarsby Challah Bake - a truly memorable evening with Andy’s family and friends. Stanmore-based Andy was a hairdresser with the biggest heart who used his skill to give haircuts to the homeless. He sadly passed away in 2019 from nonHodgkins lymphoma. £600 was raised split between Chai and The Andy Sarsby Foundation.
The cakes rose impressively and so did the money when over 50 bakers – both adults and children – took part in the Chai Lites Committee Manchester Bake Off event. Stephanie Jacobs opened her home to host the most civil of bun fights. Chai’s Northwest Regional Manager Gerry Singer and Caterer
For the past 18 years Ronnie Gottlieb OBE, Michael Lubliner and more recently Michael Lerner and Michael Davis have dedicated themselves to making Club 18 Golf Day a standout event in aid of Chai, so far raising close to £600,000. Club 18 continually raises the bar in terms of the standard of play and value of donations. Last year’s event hit a record-breaking £45,000 with funds going towards our BRCA support services Everyone was moved hearing from client Danielle Kutner about the support Chai gave her on her BRCA journey. We could not be more proud nor more grateful for the ‘above par’ devotion of our golfing heroes.
Simone Pinkus were the discerning judges, crowning Nadine Khanzadeh winner of the adult category for her fabulous carrot and courgette cake and Isabella Heywood winner of the children’s category for her delicious vanilla sponge layer cake. The skilled winners took home an Amazon voucher, which may well go towards more cake-making supplies. Cake sales, donations and raffle tickets added up to £1,200 towards Chai’s services. Chai Lites Committee Chair Jakki Pinsley said: ‘The bakers were phenomenal. We all had an amazing morning and everyone who attended thoroughly enjoyed themselves.’
Was there any better way to celebrate the King’s coronation than with a spot of ‘Chai Tea’? We don’t think so! Chai’s flagship centre in Hendon – draped in Union Jack bunting – served cucumber sandwiches (crustless, of course!), scones (66% say jam first, then cream, according to a recent survey by afternoontea.co.uk) and delicate biscuits, to clients. It was er… hard to ‘reign’ in our excitement!
The JVN Celebration of Volunteering Awards have honoured Chai’s incredible volunteers in the past and we were thrilled this year when Ronnie Gottlieb OBE and Michael Lubliner became the latest worthy winners. The award was in recognition of their committment over 17 years (at the time), organising the hugely successful, annual Club 18 Golf Day at Dyrham Park Country Club. Come rain or shine, the devoted golfers and Chai supporters never let the side down.
and golf go together like G & Tee – a winning match. This year, we applaud our two committees and acclaim a very special award
This sell-out event at the N20 restaurant – decked out with British flags – welcomed William French, butler to the Royal Family and other celebrities. He spilled the tea on working at Buckingham Palace (including his time as butler to the Queen on the Britannia and close relationship with King Charles) and revealed some scandalous celebrity secrets and shared never-before-seen pictures with the 120 guests. £4,490 was raised on the night thanks to the fabulous efforts of the Outlook Commitee: Jackie Sharpstone, Susan Freedman, Janice Sher, Rikki Sher, Sally Needleman, Michelle Lees-Smith, Marilyn Myers and Fran Goldin.
When Levana heard about Chai at Akiva school, she knew immediately that she wanted to raise money for them through her sale. Well done to the Jacobs sisters – and the teddies, of course!
In Manchester, our hugely popular ‘Kids Artisan Market’, organised by the Forever Chai Committee, returned for its third year, raising valuable funds for the Chai’s Children, Teenage and Family Service. Welcoming more than 150 people in Prestwich, 17 creative young entrepreneurs showcased everything from handmade jewellery and homeware to toys and sweet treats. The miniature petting zoo made a welcome return, too, replete with snakes, chameleons and lizards!
Ten-year-old stall holder, Koby Berens, said: ‘I love taking part – it took a lot of time to make up all the sweet cones but it’s worth it knowing the money raised goes to such a special charity.’ Chai’s Northwest Fundraiser, Jilly Berens, said: ‘This is one of my favourite events to host. The children work so hard with their own creations, and it teaches the importance of giving to charity.’ Special thanks to Alex Laddin for donating an epic balloon display, as well as all the stall holders who donated a percentage of their profits. An incredible £1,526 was raised.
The eighth biennial Golf Fore Chai golf day, hosted by committee members Jo Fogel, Carolyn Joels, Suzanne Richmond and Serena Smaje, was a roaring success. Held earlier in the summer, Hartsbourne Country Club was ‘tee-ming’ as 108 golfers ‘swung’ into action at the Golf Fore Chai event. Guests were kept satiated through the day thanks to platters of bagels, cakes and biscuits baked by Myra Rom, and vodka shots and Baileys – delivered by two buggies as golfers played. And in case that still wasn’t sustenance enough, a three-course lunch was enjoyed after the game, too.
Client Michael Bibring gave a moving speech about his family’s story and their personal experience with Chai, An overwhelmed Jo Fogel praised the ‘unbelievable generosity of our sponsor
Oakfield and all of our loyal supporters’. Chai’s Chairman, Louise Hager, said afterwards: ‘To Jo, Carolyn, Suzanne and Serena – there’s always been a synergy between the Golf Fore Chai Committee and Chai. You continue to innovate, and your loyalty and commitment goes above and beyond – it is never taken for granted and is deeply appreciated by us all.’ The day in aid of Chai raised over £72,000 for the Children, Teenage and Family Service.
While it’s true not all 12 kids who signed up for the Manchester Kids' Fitness Class at Luv Fitness Studios were thrilled at the prospect of the tough circuit and boxing class ahead of them, Chai Community Fundraiser Jilly Berens charmed them – as ever – and made even the most reluctant participant a worthy contender! All money raised was doubled and by the end, every single child – aged 5-12 – loved the class. Who knows – we may even have had the next Anthony Joshua in the room with us!
If you saw a purple, orange, pink and yellow haze in the atmosphere last Pesach, you have sponsors Relendex to thank for ensuring Chai’s message of support and care, in the shape of Pesach boxes at Kosher Kingdom, reached as many as possible. We even heard of one box finding its way to Ireland!
Thanks to Ben Woolfson for dedicating so much time and effort into making delicious iced biscuits with our logo and a ‘Purim Sameach’ message that were then delivered as part of mishloach manot to the children we support.
The Sixth Stanmore Girl Guides put the ‘super’ in supermarket when they spent a Sunday packing bags for people in their local Tesco to raise money for Chai. The regular fundraising visit – not undertaken since Covid –came back with a bang, and the guides were delighted to bank £300 for Chai, having selected it as their chosen charity due to the many family and friends in the community supported by the organisation.
The mood was high – and the donations even higher – in the Grand Gallery at The Belgravia, where 130 whisky enthusiasts raised more than £30,000 for an evening of whisky tasting! Organised by Danny Davila, Naomi Nevies, Adam Savitz and Elli Morris, the event welcomed guests with a drinks and canapés reception before they were treated to five fine and unusual whiskies to taste by whisky expert Colin Hampden-White, member of the Worshipful Company of Distillers and Keeper of the Quaich.
After a delicious dinner, courtesy of Ben Tenenblat, there was an auction led by Mark Wagner, with prizes generously donated by Glenmorangie, Macallan, Bruichladdich and the William Grant Foundation. Senior Fundraising Manager, Ian Kamiel, said: ‘The evening was the perfect blend of great whisky and fundraising for Chai. Everyone is already looking forward to the next one!’
Endless thanks go out to Liane and Mario Budwig for hosting the first of many ‘parlour evenings’ designed to raise awareness of Chai’s work. The intimate event hosted in their beautiful garden and home in Manchester introduced more than 50 people to the scope of Chai’s specialised services. Northwest Fundraising Consultant Lisa Cohen-Nissan, who organised the evening, said, 'It went fantastically well, especially hearing client Sheva Neuman speak about Chai's impact on her and her family.'
The first Bridge Lunch in the centre since Covid raised an ‘ace’ £5,000. Thank you to all 68 players who participated and organisers Carol Ellman, Jackie Sharpestone and Angela White. How lovely to have everyone back in the building and building bridges once again!
We celebrated two extraordinary women this International Women’s Day – without whom Chai Cancer Care would never have been born. Paying tribute to our co-founders, Frances Winegarten z’l and Susan Shipman-Zuckerbrod, who started Chai 33 years ago with just a telephone helpline from their homes, these remarkable women laid the foundations for what is today an organisation that has supported tens of thousands of cancer patients and their loved ones, both nationally and internationally. The legacy of those two wonderwomen continues under the inspiring commitment and dedication of Chairman Louise Hager and Chief Executive Lisa Steele.
When Jacqueline Waxkirsh was diagnosed with colon cancer less than a year after her husband passed away, Chai was there with support, giving her the space to grieve and heal through the music therapy group. On that ‘note’, the family felt the best way to celebrate her 80th birthday was to give back to Chai and so son and daughter, Gavin and Sharon arranged a surprise birthday concert featuring Jacqueline’s own compositions played by professional musicians. The event, which raised £1,095, ‘was a huge success and, of course, very unique’, the family said. ‘We cannot thank Chai and their team enough for all they have done to help not only our mum but many of her friends who also attend Chai.’
Professor Jonathan Ledermann, Clinical Director of the UCL Cancer Institute, delivered Chai’s 32nd annual Natalie Shipman Memorial Lecture online, this year titled ‘How BRCA Gene Mutations are Spearheading Ovarian Cancer Treatment’ (watch at: tinyurl.com/mv7nb9zm). Almost 200 people tuned in to listen to Professor Ledermann, who’s been involved with Chai from its early days. The annual lecture is in memory of Natalie z’l, daughter of Susan Shipman-Zuckerbrod, who co-founded Chai after her daughter was diagnosed with cancer at just three years old and sadly passed away just before her eighth birthday.
Chai Chairman Louise Hager spoke of how Chai maximised Zoom’s potential during the pandemic, allowing them to reach and support many more people worldwide. Chairman of Chai’s Medical Advisory Panel, Dr. Adrian Tookman, spoke of his pride at being involved with Chai and witnessing it evolve, before introducing Professor Ledermann.
Read our important article about the NHS BRCA-testing programme for the Jewish community on p10.
In June, at the Freemasons’ Hall in London, bow ties were sported by many at a service commemorating the life of Lord Young of Graffham z’l, who was known for this sartorial flourish.
From the secular and Jewish world, family, friends, political and business colleagues remembered David Young’s courtesy, enthusiasm, creativity and sense of community. Son-in-law Sir Bernard Rix, noted his initials, DIY (David Ivor Young) were entirely fitting for the man whose interests were vast, and included photography, politics, education, charity and enterprise. Other speakers included former PM David Cameron, Dayan Binstock of St John’s Wood synagogue, Chirstopher Jonas, vice chair of UCL, Gerald Ronson CBE, and exoffender Duane Jackson, supported through Young’s Enterprise Scheme.
Lady Lita Young spoke of her late husband as the ‘bedrock of our family,’ while granddaughter Matilda, shared this about her ‘Papa’: ‘When you saw his smile, it was like you had come home’. As President of Chai for 16 years, the organisation was privileged to have benefitted from Lord Young’s wise counsel, experience and compassion, which were pivotal to its development. Music included recitals by Sir Bryn Terfel, accompanied by harpist Hannah Stone and the Neimah singers, directed by Jonathan Weissbart.
Lord and Lady Young with daughters Karen (left) and Judith Lord Young speaking at a Chai fundraising DinnerKeeping Chai in their hearts, our incredible supporters take on the longest, highest, muddiest challenges. We thank you for putting every ounce of effort into fundraising so we can be here for our clients
#1 October 2022 TCS London Marathon Team Chai’s efforts in the Autumn Marathon were a huge success, with more than £39,000 raised.
Ariel Shapiro flew in from Israel to participate. ‘Several family members have battled cancer so it’s an honour to run for Chai, knowing the money raised will improve the emotional welfare of patients and their families and friends.’ Ariel completed the marathon in 5hrs 23min and raised £1,300
Sara Goldstein and boyfriend Ben Mesrie together raised a phenomenal £12,400 with Ben finishing in 4hrs and 17min, and Sara wasn’t far behind at 4hrs and 32min. ‘Absolutely loved it!’ Ben said. ‘Thank you so much for giving us the opportunity to do it for Chai.’
The rest of Team Chai comprised Rabbi Menachem Korer, Joe Lister, Sam Simon, Dylan Stephens, Ali Blackwell, Justin Saunders and Danny Ogen.
#2 April 2023 TCS London Marathon Another phenomenal Team Chai took to the streets in Spring and clocked up a whopping £53,658.
Sonny Gayer who with his father Darren raised a dazzling £11,382 said, ‘Chai were so kind when my grandfather was ill several years ago. I’ll never forget it.’
Danny Tricot marked turning 50 by running the gruelling 26.2 miles. ‘I have close family and friends whose lives were cut short by cancer. I was so moved when I heard what Chai had done for them.’ Danny crossed the line in 3hrs 52min and raised a phenomenal £19,300. With a time of 4hrs 32 min Aryeh Richman said it was ‘a privilege to run for Chai and help them with the important work they do.’ He raised £4,855.
‘Running is very symbolic of life,’ explained veteran marathoner Ricki Stone after finishing in 4hrs 53min. ‘You must drive yourself to overcome the obstacles and find inner strength'. She raised £4,479.
Speedy Ben Horn went round in 3hrs 19min and raised £4,240. He was inspired by his sister Steph, a physio at Chai. ‘She’s one of many people who contribute to the amazing services,’ said Ben.
Victor Arotsky’s impressive 3hrs 26min was matched by £3,250 raised. ‘Chai was our onestop-shop for advice, support and care after my father was diagnosed with cancer. Even after he passed away, Chai has supported us.’
Kudos, too, to our other runners, Simon Kutner who raised £4,747 in a time of 3hrs 44min and Lucy Cohen whose finished in 4hrs 54min with £3,917 raised. Phew – we’re exhausted just thinking about it all!
Emma Seifert raised £1,425 on a Regents Park Run, achieving a personal best for 10km in just 58mins. She donated to Chai, ‘in loving memory of my Grandpa, Julian. Supporting such a wonderful charity made it even more meaningful. The encouragement of family and friends throughout was incredible; they cheered me on during the race although the best thing about reaching the finish line was seeing my dog Harley waiting for me!’
Daniella Giessing completed a 20km Hampstead Hike in memory of her grandparents and uncle. She split the £1,776 raised between Chai and the Chevrah Kadisha, Johannesburg. ‘I’m extremely happy to have supported Chai, as they are an amazing charity that helps many individuals and families.’
Congratulations to Emma Levy, Jonathan Levy, Ben Roston, Melissa Roston, Michael Bleys, Gil Rabbie, Greg Krieger and Mark Nash for participating in Battle Cancer, the fitness, strength and endurance challenge, where the money raised went to both Chai and Future Dreams. ‘We couldn’t think of two charities closer to all of our hearts,’ they said.
Hedy Nash – with a little help from her friends Lisa Placks, Mandy Singer and Bev Stingber – raised £3,452 on a 10km walk for Chai. It was her way of giving back to the charity that supported her so much while she battled blood cancer in the brain. ‘We completed the walk with lots of dancing, singing and giggling along the way! Thank you to each person who donated – it makes a huge difference to Chai, and we are overwhelmed by the generosity.’
Our resident Dietician at Chai Cancer Care, Sara Hausmann, challenged herself to participate in the Hyrox Challenge – the biggest indoor fitness event worldwide – and raised £4,148. With absolutely no bias at all (ahem…), she says Chai is ‘a fantastic charity which supports patients, family and friends to manage the impact of a cancer diagnosis,’ adding ‘what's more they don't charge for their services, and receive no government funding… it's all down to the generosity of the community.’
Alex Newman raised £2,569.50 as part of the London2Brighton Ride. ‘It was tougher than I anticipated, but l enjoyed it so much,’ he said. ‘I was very proud to wear my cycling jersey, representing Chai and all the outstanding work you do.’
Michal Chody switched from running to cycling to take part in RideLondon – a 100-mile tour de force (as opposed to a Tour de France) from London to Essex, and back. ‘An opportunity to fundraise for Chai was the best motivation for this exciting yet daunting adventure! Working with people who have cancer as a physiotherapist at the Royal Free Hospital and knowing the challenges they face, it’s vital we ensure Chai can do everything to support people through a cancer diagnosis.’ Her efforts raised £3,142
Across the sea, some 13,000km away, Chai Trustee Leon Shelley raised a humungous £11,945 as part of the Comrades Marathon South Africa, where he placed 6,753 out of over 150,000 runners. ‘Thank you so much to everyone who has donated to Chai in memory of my late mother who received incredible support from them,’ he said.
Over the pond, veteran runner Jonathan Barr raised £2,000 in the Boston Marathon split between Chai and the North London Hospice.
‘It is always my greatest joy to give back and be able to help Chai help others – as I do with my running. Boston was my 31st marathon and it happened to be my 25th marathon postchemo. I still have more to do and give back.’
Tough Mudder Midlands took competitors out of their comfort zone and into the grounds of beautiful Belvoir Castle. Simon Peters braved the muddy indignity and raised £978 for Chai.
More than 100 runners – many of whom have had personal experience of Chai’s support –braved the scorching weather in June (yes, it was hot back then!) to raise more than £13,000 as part of the Maccabi GB Community Fun Run . Energetic and committed Chai participants – aged two to 70 – dusted off their running shoes to participate in 10km, 5km and 1km distances. As Chai had the most runners (go us!), one of our participants, nine-yearold Ollie Grant , was chosen to open the Fun Run.‘I feel inspired by people who run for charity so wanted to try it myself’, he said. ‘I am running for Chai as my mum and auntie work there and I know it is a great charity that helps lots of people.’ Chai Community & Corporate Fundraiser Lucy Hayim , said: ‘We were blown away by all our runners! It was so fantastic that Chai had the highest number of runners this year, which shows how so many in the community support Chai. A huge thank you for braving the heat and supporting Chai in this way.’
‘Dan Shaw was a muchloved colleague who sadly passed away in 2020 from oesophageal cancer,’ said fellow workmates at law firm CMS. Because of Covid, they were unable to say farewell or mark his passing, ‘so we made up for it this year with several events dedicated to Dan’s memory that we’re sure he would have loved!’ The Dan clan arranged the CMS Pension Industry Reception, CMS England vs Wales World Cup match, CMS Client Afternoon Tea, a Quiz Night and a Cake Sale. The aim was to ‘commemorate Dan and raise money for Cancer Research UK and Chai Cancer Care, which provided support to him during his illness and for which his family was very grateful.’
Some fundraising efforts are a real ‘cut’ above the rest, and we could not be more grateful to the girls and boys who selflessly grew their hair for years only to have it chopped off for charity!
Eight-year old Charlie Krushner raised an incredible £2,351 following three cancer diagnoses in his family during the pandemic. ‘This made me really sad and scared as they were all having big operations and treatments at the same time and I couldn’t visit them or hug them to make them feel better,’ he said. Not only did he donate the money to Chai as a thank you for looking after his relatives who have all – thankfully –made a recovery, but he also donated 14 inches of his hair to be made into a wig for a child having cancer treatment through The Prince's Trust.
Eleven-year-old Sarah Garson also spent two years growing her hair to donate to Zichron Menachem to be made into a wig and raised £1,877. This is the second time Sarah’s donated her hair for Chai. The ceremony was quite an event, taking place in the Chai Image Room, with four proud generations of her family singing and cheering her along! Thank you, Sarah, for doing the double for Chai.
In a somewhat different - yet equally fantache-tic vein, brothers Zack and Josh Riffkin spent the month of Movember growing their moustaches for Chai and raised £2,131 follicle by follicle. The global Movember campaign encourages awareness about men’s health, particularly testicular and prostate cancer.
‘Eighteen months before my Bat Mitzvah we were planning what we were going to do to honour my simcha,' says Abby. 'A family friend’s daughter donated her hair with Chai when she was in Year 2 and this inspired me to do the same through Chai. Thank G-d, my family and I don’t have a connection with Chai but I love it and I wouldn’t mind doing the whole thing again - growing it long, cutting it and donating it to such a worthy cause.’
‘I decided to dedicate the month of February to going on 28 blind dates in 28 days as this was a personal challenge that pushed me out of my comfort zone,’ said Aimee of her unusual challenge which supported both Chai and GIFT and which raised in total £8,967. ‘Running my own dating agency and playing matchmaker is a joy, but it was time I let go of setting everyone else up and got myself on the dating scene! Chai’s work reaches so many people in our community and I have friends who’ve benefited from their support. I discussed ways of collaborating with Chai and the 28 dates challenge was, well… a match made in heaven.’
Deborah generously donated the proceeds from her one-to-one readings to Chai for six months. ‘Chai does remarkable work and I’ve seen first-hand the help they have given to friends of mine. One close friend is currently using the services and I know many involved in the charity.’
‘My grandma passed away a few weeks ago and at the shiva house someone said how important it is to do things to help elevate the neshama (soul) of someone who has died,' says Joshua, explaining his motivation for the 24-hour challenge. 'Chai does amazing work to help people and they need appreciating more. This was a way for me to help Chai and be thinking of my grandma as well.'
David Cohen raised the money in memory of Mike Adler z’l through Finchley Federation’s annual tennis match against Shomrei Hadas. Mike played with his chevra from Finchley Federation every week, and while ‘he wasn’t competitive’ or ‘the best of the bunch … he thoroughly enjoyed his game and played with a spirit that reflected his easy-going, optimistic personality’. Smashing achievement, David!
Jonah and his dad, Adam, walked the entire Northern Line (Morden to High Barnet via Charing Cross) – spanning more than 40km – in one day!
They raised an astonishing £18,940, split between Chai and Homeless Action for Barnet.
Eleven-year-old Shira Gilbert climbed Helvellyn, the best-loved peak (250,000 a year do it!) in the Lake District, raising herself 950m above sea level while raising £2,464 for Chai. ‘I chose Chai because I care about helping people with cancer,’ said Shira. ‘A year and a half ago, my Gran was diagnosed with cancer. She had NHS support, but Chai provided extra care and counselling. It was the first place she called when she discovered she had cancer.’
Visit chaicancercare.org and follow our quick links to make donating easy
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Nominate Chai to receive a donation in lieu of gifts.
Contact Jacki Stanton: jackistanton@chaicancercare.org or call on 020 8457 3231
FUNDRAISE FOR US
We can support and advise you on how to make an event or challenge a roaring success.
Contact Caroline Tunkel at carolinetunkel@chaicancercare.org or call 020 8457 3233.
The son of Chai Trustee Alexandra Maurice, passionate supporter who runs the Chai Challenges You fundraisers, is following in his mum's footsteps. He made this generous donation to Chai, along with friends and family, from his Bar Mitzvah gift money.
Lifelong friends Ruby and Luca completed a 24-mile trek in the South Downs in aid of Chai which is very dear to them as as the charity has supported family and friends. The hike was challenging – not only due to the distance but also the scorching weather – but they persevered over two days, complete with a fun camping experience overnight!
DONATE ONLINE
Swift, and secure, scan this QR code or click on the Make a Donation tab on our website and follow the instructions. chaicancercare.org/donate
LEAVE A LEGACY
Visit Jewish Legacy Giving (jewishlegacy.org.uk) to find out more. We would also be honoured to recognise your generosity during your lifetime.
Contact Lisa Steele: lisas@chaicancercare.org or call 020 8202 2211
BY PHONECall Jacki Stanton on 020 8457 3231 or Dana Levene on 020 8457 3232
BY POSTSend cheques or charity vouchers to:
Chai Cancer Care
142 – 146 Great North Way London NW4 1EH
GIFT AID YOUR DONATION
If you are a UK taxpayer, Gift Aid increases your donations by 25%.
Download a Gift Aid Declaration form from our website.
DONATE AS YOU SHOP
George Rosenfeld of the Kol Tov singing group is the face of Tap to Give, our contactless way to donate £3. Find him in kosher stores in London and Manchester.
GIFT ONLINE
Hosting a Shabbat dinner, lunch or party? Invite guests to skip the gift… and donate direct to Chai. Visit giveitapp.org
Thanks to the generosity of the community, Chai Cancer Care provides specialised support to thousands of people across the UK who have been affected by a cancer diagnosis.
To find out more please call our Freephone Helpline on 0808 808 4567 or visit www.chaicancercare.org
Services are available at:
North West London
South London | Essex
Hackney | Southend
Birmingham | Leeds
Liverpool | South Manchester
North Manchester
Glasgow | Clients’ Homes
Advisory Services
Advocacy & Information
Advice Bureau
Financial & Legal Guidance
Jewish Perspectives on Cancer
Medical Connections
Nutritional & Dietary Advice
Resources & Information
Counselling
Counselling for Individuals, Couples & Families
Counselling for Genetic Issues
Music Therapy
Relationship Counselling
Telephone, Skype & Zoom Counselling
Children, Teenage and Family Service
Art Therapy
Music Therapy
Play Therapy
Chai in Schools
Therapies
Manual Lymphatic Drainage
Physiotherapy
Post-Prostate Surgery Advice
Chai Medical Clinic
Complementary Therapies
Acupuncture
Aromatherapy
Craniosacral Therapy
Foot Care Service
Healing
Hot Stones
Hypnotherapy
Indian Head Massage
Reflexology
Reiki
Shiatsu
Therapeutic Massage
Home Support Service
Image Resource Services
Hair, skin & nails advice and care
Manicures
Semi-Permanent Makeup
Styling Workshop
Group Activities
Art Workshop
Chai-ly Active Classes
Computer Lessons
Creative Writing
Israeli Dancing
Jewellery Workshop
Knitting
Laughter Therapy
Lymphoedema Exercise
Meditation
Mindfulness
Music Workshop
Open/Supervised Gym Sessions
Pet Therapy
Pilates
Table Tennis
Walking Group
Wednesday Afternoon
Social Yoga Support Groups
Bereavement Groups
BRCA Groups
Breast Buddies
Groups for Cancer Patients/Carers
Lifestyle Group
Men’s Support Group
Women’s Support Group
Young People’s Group
By Your Side
Volunteer Service