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September 22, 2016 | 48 pages
www.insidebelleville.com
Macmillan abandons funding appeal, will fly to Germany to have surgery done
By John Campbell
Trent Hills – Mayor Hector Macmillan will travel to Germany next week to have the cancerous tumour in his pancreas removed. And when he returns “healthy” he vows to resume his fight to have the same surgery made available in Ontario. He decided to abandon his appeal of a decision by the Ministry of Health and Long-Term Care to deny him out-of-country funding to cover the cost of his treatment because time is running out. Without the surgery, Macmillan has told people, he could be dead by Christmas “Right now it’s time to get better,” he said in an interview Sept. 17. “I was about to lose an appeal I could never win, and you just got to know when to fold them,” he said, but “it’s far from over.” A day earlier he had taken part in his third case conference call to establish when his appeal would be heard by the Health Services Appeal and Review Board. Three days were set aside for the hearing to be conducted in full, with
the last day tentatively set for Sept. 29, the day Macmillan said he’s scheduled to have his surgery at Stralsund. (He told council Sept. 20 the date had been changed to Oct. 6) “The consequences are far too extreme and important to be gambling with my life, and it’s abundantly apparent that OHIP is going to make an example out of me even if they have to kill me to do it,” he said. Its officials have “a dirty bag of tricks and they were pulling out all the stops.” Macmillan had originally planned to have the operation known as NanoKnife irreversible electroporation (IRE) performed by a surgeon in Kentucky, Dr. Robert Martin, who has perfected use of the technology, which uses electrical pulses to kill cancer cells. But the high cost of IRE there– more than $300,000 Canadian – led him to look elsewhere where it isn’t as expensive. Friends pointed him to a doctor in Germany, who says he will be able to perform the procedure within two weeks, Macmillan said in a release. “It’s such a wonderful experience to be exposed to a healthcare system that actually cares about [its] patients.”
“I just hope it’s not too late, through all of this being dragged out,” Macmillan said on Saturday, revealing the back pain he experienced a year ago that prompted him to visit the doctor and eventually be diagnosed as having pancreatic cancer has recently returned and “it’s getting worse every day.” He expects to be in Germany “the better part of a month,” from the time of his arrival to the end of his stay in the country, which includes his being monitored post-surgery, “to make sure everything’s all well.” The cost of the operation and time spent in the hospital is roughly $32,500 Canadian. He’ll also receive chemotherapy, which can be expensive, and there are the costs of travel and accommodations to cover as well. He doesn’t know what it will all add up to but he will “need every nickle” that’s been raised online via GoFundMe and through an account set up at TD Bank by a group of Trent Hills firefighters, their wives, and others who call themselves Friends of Hector. As of last Saturday the amount stood at around $60,000, he said. One of the reasons Macmillan was given for his being denied out-of-country funding is that IRE is considered
“experimental” by the Ministry of Health but he points out the treatment is done in numerous countries, including Britain and Australia, as well as the United States and Germany. His surgeon, Dr. Matthias Birth, said the surgery is “routine,” Macmillan said. “I believe in IRE technology. What I can’t believe is why we’re not using it, and we’re going to fix that.” Macmillan said 2,000 Ontarians a year are diagnosed as having pancreatic can- Mayor Hector Macmillan. Photo by John Campbell cer and half of them would be candidates proof,” he said. “This is just beginning for the life-saving surgery he will soon because now I’m going to have even undergo. further evidence that IRE works.” He’s looking forward to when he He said if the University Health “come(s) home healthy” and prov- Network in Toronto is not interested ing to ministry officials they are “so in providing IRE for pancreatic cancer wrong” about IRE. patients, he will seek out other regional “I’m going to bring home the health-care centres in Ontario that are.
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