Jacob's Heart Children's Cancer Support Services 2015 Annual Report

Celebrating Love A year of bringing hope and healing to more local children and families than ever before.

Beautiful Maddie Forever in Our Hearts

Providing • Emotional Support • Peer Mentorship • Practical and Financial Assistance • Transportation • Community Education • Loving Connections to 600 children with cancer and more than 2,000 of their family members in Monterey, Santa Cruz, San Benito and South Santa Clara Counties since 1998. This love is now being extended to children with other life-threatening illnesses.

Renzo, age 3, surviving kidney cancer

Honoring Families “One sees clearly only with the heart.

Anything essential is invisible to the eyes.”

Antoine de Saint-Exupéry, The Little Prince

Baby Xavier, Forever in Our Hearts Xavier was the first child with a non-cancer diagnosis to be welcomed into the Jacob’s Heart family in 2015.

Did you know?

Every $1 donated to Jacob’s Heart = more than $2 in direct service to families.

Why? Because of our efficiency, low overhead, dedicated volunteers, and donated goods and services.

Amani, age 8, surviving Wilms Tumor

Reaching Milestones

“Unless someone like you cares a whole awful lot, nothing is going to get better. It’s not.”

Dr. Seuss, The Lorax

Our new and expanded home, donated

by Granite Construction, includes: • Hospice Giving Foundation’s Hall of Fame • The Dobbins Family Resource Center in memory of Augustin Ramirez • The McDill Children’s Jungle Zone in memory of Maddy Buell • Jerry’s Teen Zone in memory of Jerry Loyola • Caroline’s Closet at Jacob’s Heart in memory of Caroline Licker • Derek’s Corner in memory of Derek Aguas • California Grill at Jacob’s Heart • Our Family Art Room, thanks to donations from the employees at NVIDIA • New carpeting, lighting and appliances, thanks to Warehouse Direct And three new vehicles, for our expanded transportation program.

Vehicles donated by: KSCO Radio (CMax)

Harden Foundation

MyCars.Com

2015: a year of caring... $228,606

worth of direct financial assistance

and practical support, including payment for rent, utilities, gas, groceries, meals, funeral assistance and other necessities

125 families whose children are battling cancer or another serious illness were showered with gifts and wishes for the holidays, valued at

$91,000

185 bilingual support groups for families in treatment and those who are bereaved

In-kind donations and volunteer hours valued at

$653,750

2,362 hours of direct support to 202 local children with cancer or other life-threatening illnesses and their

796 family members

30 peer mentoring outings 1,378 rides arranged and

for teens with cancer and their siblings

180 rides provided to treatment at Lucile Packard Children’s Hospital at Stanford and UCSF

$11,800 in gas cards

2,400 deliveries of gift baskets, meals, quilts, cards and other comforts

3,510 bags of nutritious groceries

to children and families

delivered to homes and hospital rooms

Love and connection among families‌ immeasurable!

Creating Connections “If ever there is tomorrow when we’re not together... there is something you must always remember.

You are braver than you believe, stronger than you seem, and smarter than you think.”

Winnie the Pooh

Jacob’s Heart families celebrate Childhood Cancer Awareness at Baby Matthew’s Golden Gallop.

Love Letters to Jacob’s Heart “You make an unbearably difficult time a whole lot easier for our family. There

“I love going to Jacob’s Heart on my way home after you drive

are no words to express our gratitude.”

me to the hospital. Thank you for helping me learn to play

Leah, Reba’s mom

the piano; it gives me something to concentrate on while I’m isolated in treatment.”

Citlali, age 14 Citlali, Leukemia

Reba, Neuroblastoma

“I just wanted to say thank you for your kindness. We are thankful for your home visits and play, art therapy for my son. To think there are people out there who have been so generous to us makes me realize that when this is all behind me, I will need to get out and do more to help others.”

Ana, Bryan’s mom Bryan, Leukemia

“Finding out your child has cancer is devastating and we felt completely alone.

All of you at Jacob’s Heart have become a family to us, bringing a feeling of love and belonging, which can be rare with families who have a child with cancer. The

“There have been so many difficult days and dark hours during my

siblings are also supported with youth group outings and activities, which is so important because siblings suffer cancer too. Thank you.”

Vicky, Ben’s mom

daughter’s cancer treatment, and

Ben, brain tumor

Jacob’s Heart has been our source of strength. I could never say thank you enough.”

Marta, Daisy’s mom Daisy, Leukemia

“It makes me so happy to know that my little brother will never be forgotten, because Jacob’s Heart always remembers him and remembers our family even though he’s not here any more.”

Noa, Matthew’s sister Noa saying goodbye to Matthew

Envisioning Our Future Over the next few years Jacob’s Heart is: • Creating Camp Heart+Hands, a free, weekend camp for families touched by pediatric cancer • Instituting a Forward Funding model by building a financial reserve to ensure long-term sustainability • Expanding our reach to more children with noncancer, life-threatening illnesses • Raising funds and support to expand our services in Santa Clara County • Launching a new bilingual website with a special portal for families to access critical information • Strengthening collaborations with local, regional and national organizations • Bringing best practices and national standards of care to children in our local community Mariela Medina received the 2015 Award for Outstanding Leadership from the Nonprofit Alliance of Monterey County for turning her personal experience as a teen with cancer into a meaningful career as Jacob’s Heart’s Teen Support Specialist.

(Photo insert, Mariela at age 14 during treatment for stage 4 Lymphoma)

Where the support came from in 2015: Compassionate Businesses Caring Individuals and Bequests Organizations and Groups Program Grants Community Events

12% 35% 23% 23% 7%

$106,072 $301,874 $200,892 $201,674 $63,574

Total 100%

$874,086

How the support was shared in 2015: Emotional Support and Counseling 20% Family Financial and Practical Assistance 26% Peer Mentorship and Social Support 15% Community Education and Awareness 16% Program Management 11% Fundraising

Total

12%

100%

$129,014 $170,852 $95,644 $104,406 $71,794 $75,870

$647,580

Additional Family Support: Value of donated groceries Value of donated goods for families Adopt-a-Family (gift cards and gifts) Value of volunteer family service hours

Total donated goods and services

$87,750 $155,000 $91,000 $320,000

$653,750

Good Stewardship: In 2015, we opened a Stewardship Fund for the Future of Jacob’s Heart in order to build a financial reserve so that families continue to receive services during difficult economic times. We would love to talk with you about planned giving, how you can invest in the future of Jacob’s Heart, and share our fully audited financial statements with you.

Manny, age 2, Acute Lymphoblastic Leukemia

Our Major Donors in 2015 Platinum Hearts $50,000 & above Hospice Giving Foundation

NVIDIA

Gold Hearts $20,000 - $49,999 California Giant Berry Company Caroline’s Non Profit Thrift Shop Harden Family Foundation Derrick Hoskins | MY Chevrolet Joey’s Light Fund Jordan and Kyra Memorial Foundation Lakeside Organic Gardens Lucile Packard Children’s Hospital Stanford Children’s Health Monterey Peninsula Foundation Michael Zwerling | KSCO Radio Silver Hearts $10,000 – $19,999 Community Foundation Santa Cruz County The Dobbins Family Foundation Jim and Nanci Dobbins Driscoll’s Strawberry Association East Bay Community Foundation Stephen and Kathryn Jackson Jackson Family Trust Scott Roseman and Jasmine Berke Nancy Buck Ransom Foundation Newman’s Own Foundation Outrigger Santa Cruz Santa Cruz Cancer Benefit Group Sharks Foundation Stephens Construction Loving Hearts $5,000 - $9,999 Ben’s Motorcycle Works The California Grill Silvia Cierkosz J and J Ellis Fund Fitz Fresh Amie Forest Genentech Granite Construction Pajaro Valley Community Health Trust Carl and Mary Jane Panattoni Mark and Laurie Scurich SDJ Investments Frank Sollecito Jr. Foundation Subaru BAM Randall A. Wolf Family Foundation Yellow Brick Road Benefit Shop

Caring Hearts $1,000 - $4,999 Airtec Service American Golf Foundation AMR Ariel Records | Linda Arnold Bardis Foundation Wayne and Lorna Barnes Bay Federal Credit Union Roberta Burns Greg Busch Peter and Cara Butler Bernice Caminata Capitola Healing Association Gregory and Carmen Caput Coach Perry Foundation Bud and Rebecca Colligan CrossFit Ranch and Team Effy Douglas and Diane Deaver David Dehmer | Monte Vista Parents Delta Fund Administrators Digital Nirvana Dan and Kathy Doerksen Doerksen Precision Products Robert C. and Robin Fox Fund Silicon Valley Community Foundation Freedom Lions Club Galluci Family Charitable Trust Gary Gogol Greater Houston Community Foundation James and Mary Pat Hawkins Alan Hiromura Paul and Nancy Horn Pam and Tim Humphreys Italian Catholic Federation Jean-Marc Jot Robert Kaswen Suzanne Kerley and Doug Hetzler Keurig Green Mountain King’s Plaza Shopping Center Links for Life Foundation Lluvia de Petalos Jerry Loyola Foundation Tom and Becky Mahony Main Street American Fuels Mazal Foundation Santa Cruz Longboard Union Victoria and James Melendy David and Marylu Mesa Messiah Lutheran Church Monte Vista Christian School Melissa McDill | McDill Associates Edward and Donna Nigro Pajaro Valley Association of Realtors Pajaro Valley Host Lions Club Carl and Mary Jane Panettoni Charles and Anna Pedrazzini Geoff Perusse and Analisa Baker Valentia Piccinini M. Resetar Jr. Family Foundation Robert Ridino Santa Cruz Home Finance Savastano Family Foundation

Tom Savell Corrie Scalisi Dane Scurich A. C. Smith Star One Credit Union Mike and Linda Stemler Stungun Productions The Peggy & Jack Baskin Foundation Twin Lakes Baptist Church Warner Family Trust Watsonville Buick GMC Watsonville Police Officers Association Watsonville Rotary Foundation Wells Fargo Foundation Eric Wexler | Tanimura and Antle Harold Widom Peg and Chuck Winston Cynthia Weigelt and Bruce Brinker Kind Hearts $250 - $999 Mary Albert Alsion Early College High School Alvarez Titans Ave Maria Memorial Chapel American Legion Post 694 Kevin and Cherie Anderson Douglas Anderson Janet Anderson-Glynn Judy Andrews Dr. Asadi Azorean Brothers MC Ann Backovich Judy Barbata Nikolai Bahram & Juliane Farrand Jean and Michael Beebe Gloria and Larry Behman Carlton Benson Deana Bible Lawrence and Ellen Borger Walter & Carolyne Jean Brookman Cecilia Brown and Lorie Alessandro Melissa and Kimberly Burke Thomas and Grace Sanchez Bush Michael and Denine Butcher Joe and Lori Butterworth Capitola Public Safety & Community Service Foundation The Card Shark Cathleen Chandler Eckhardt Momi Chang Chaminade Resort and Spa Jack and Penny Cheney Couch Potato Don Chapin Company Sylvia Cierkosz Congregational Church of Soquel Vicky Culver David and Maria Culver D’Arrigo Brothers Company¬Robert and Diana Deacon Daniela DeBaca Craig and Audra Descalzi Heather Devencenzi

James Duimstra & Marshall Carpenter Jon and Aldene Fanoe Ronaele Findley Terry Fleming Ducato Foothill School Steven Garner, MD Colleen Gilmartin Marjorie Glover Eugenio and Mary Alice Gonzales Karen Grable Constance Greene Grind Out Hunger Jana Gill Marc Grossman, DDS Peter and Hilary Hanlon Happy Days Children’s Learning Center William Haskin and Donna Horan Hawthorne Gallery Susan and Greg Hawthorne Jeanne Herrick Christy Hill Phillip and Virginia Hinkle Stephen Houlihan & Marlene Mirassou Ideal Bar and Grill JG Painting Lee Jacobs Jeff Kane Insurance Solutions Bilge Kapkin Gordon and Cheryl Kaplan Lori Katterhagen Kindrub Aram Kinosian Kitayama Brothers The Lenore and Howard Klein Foundation Laurel and James Krzeminski Gloria Lacasandile Patrick Reily and Diane Lamotte Jason Lawrence Lehr Family Living Trust Marq and Liz Lipton J.M. Lukan Melinda Luna Dave Loustalot Lori Madden Mann Packing Company Anna Maniscalco April Martin John and Megan Martinelli Stella Mary Lee and Shelley May Josh May Madeleine Boriss and Mike McClellan Duncan M. McCollum D.C. McClellan Botanicals |Taisuco America Ryan and Rosanna McCormick James McMillin Forrest Monroy Alvis and Gertrude Moore Lillian and David Nielsen Joemaiyra and Edgar Nolasco Janis O’Driscoll Gayle and Joe Ortiz The Estate of Mary Ann Parker Stephen Parmelee

Reith Patterson, Jr. Dianne and Stephen Pereira Pioneer Interact Dana Pizzuti Andrew Pletcher Precision Dynamic Machining Queens Shoes and More Raffo Family Brenda Rackley Rainbow Carpet One Rowland and Patricia Rebele Jo Ann Resteigen Michelle and Todd Riddle Ann Rogers Christopher and Kristine Ronzano Brian Ruf and Marnie MacMillan Philip Ruiz Gary Sackett Salinas Women’s Business Network Salud Para La Gente Barbara Sanders Jessie Sanders and Brian McGauley Patrick Sanders Santa Cruz Derby Girls Santa Cruz Port District Santa Cruz Friends Meeting Santa Cruz County Sheriff’s Posse David and Michiko Saylor Linda Scaroni and David Rossi Martin and Vicki Schumaker Scotts Valley High School ASB Thomas Shannon Howard Sherer Aaron and Polly Sirles Smith Realtor Sons of Italy in America Erica Sowder Caren and Dale Spencer Walter and Janice Spichtig Jan and Debra Strawmyer Sweet Darling Sales Dennis and Anne Taku Linda Terpstra Walter and Sue Thomas Gordon and Lisa Thygeson Martha Tiedeman True Organic Products Susan and Paul Ulmer Gloria Vasquez Viscusi Elson Diane Waldherr Dave Wardle Warehous Direct Watsonville Community Hospital Marianne Webb Alice Weigel Floyd and Jeannette Williams Jon and Jill Winston Melissa Wolfe Edwin Wood Craig and Margaret B. Wynn Dora S. Ybarra Barbara Zirretta

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Dear Friends, Since 1998, Jacob’s Heart has provided hope and healing to families whose lives have been broken by childhood cancer.

Each day, we commit ourselves to one goal: to alleviate the challenges faced by families enduring the unimaginable. Now, after 18 years, our services are at the forefront of national standards of care.

A study published by the Dana-Farber/Boston Children’s Cancer and Blood Disorders Center in 2015 revealed that almost one-third of families of children with cancer face devastating financial hardship and one-quarter lose more than 40 percent of household income. The Journal of Pediatric Blood and Cancer published the first peer reviewed national standards for the psychosocial care of children with cancer and their families.

Our services at Jacob’s Heart are aligned with these national standards, and are now being extended to children with other life-threatening illnesses.

Lori Butterworth, Founder and Executive Director

In 2015, we welcomed families of children with non-cancer, likely terminal diagnoses into the Jacob’s Heart family of families. This was made possible by strengthening our partnership with Lucile Packard Children’s Hospital at Stanford and cutting $34,000 in overhead costs thanks to Granite Construction’s gift of a rent-free home. We are blessed by the addition of these new families.

With no government funding and no reimbursement from insurance, we rely 100% on our community to bring love, joy and healing to hundreds of local children and their families.

Thank you for miracles you made possible in 2015. With your support we will continue.

Sincerely,

Lori Butterworth and Melissa McDill Melissa McDill, Board President

Celebrating Generosity

Jacob’s Heart honors those who have made major, multiple-year investments to improve the quality of life for children.

NVIDIA is investing in Jacob’s Heart to ensure that children with cancer receive essential support.

Granite Construction provided a new rentfree home and a generous grant to Jacob’s Heart.

Peixoto family, owners of Lakeside Organics and the California Grill, care enough to give generously to Jacob’s Heart in a variety of ways.

Jim and Nanci Dobbins have been giving major gifts for 15 years.

Harden Family Foundation provides matching grants inspiring others to give.

Derrick Hoskins of MY Chevrolet donated a Dodge Caravan to provide rides to treatment.

Monterey Peninsula Foundation gives ongoing program support.

Christy Licker donates proceeds from Caroline’s Thrift Store every year in memory of her daughter Caroline.

Ed and Jean Kelly bring smiles and laughter to children at the annual Jacob’s Heart holiday party.

SCCBG has supported children with cancer at Jacob’s Heart for 17 years.

Bill Moncovich, CEO, Cal Giant Berry, lends a hand and shares his heart.

KSCO Radio donated a Ford CMax Hybrid for safe, reliable rides to and from treatment.

Hospice Giving Foundation shares our belief that living well includes dying peacefully, in comfort, and with dignity.

CFSCC gave Jacob’s Heart our first grant in 2000 and continues to give generously today.

Outrigger Santa Cruz paddled for Jacob’s Heart under the leadership of Dave Waynar.

Generous support to Jacob’s Heart in memory of Jordan Stewart and Kyra Pillsbury.

“Being a mother of a child with cancer is very difficult.

Jacob’s Heart has given me strength to keep moving forward for my precious little girl.”

Brianna’s mom

Brianna, age 5, Acute Lymphoblastic Leukemia

BOARD OF DIRECTORS OFFICERS President Melissa McDill

Vice President Robert Kaswen

Vice President of Governance Scott Roseman

Vice President of Development Nanci Dobbins Susie’s sister

Secretary Bobbi Burns Cole’s mom

Treasurer Lee May

MEMBERS Judith Barbata, MA Melissa Burke, MPH Audra Earle, MBA Marjorie Glover Aimee Grijalva

Matthew’s mom

Maritza Loyola

Jacob’s Heart exists to improve the quality of life for children with cancer and support their

families in the challenges they face. We envision a community where every child with a life-

Jerry’s sister

Laurie Machado, JD, MBA John David Mark, MD Trisha Meraz

Dustin’s mom

Ryan McCormick

threatening condition has a strong, informed and supportive family able to fully participate in their care.

680 West Beach Street, Watsonville, CA 95076 | 831.724.9100

Manny Solano

Founder and Executive Director Lori Butterworth

Printing donated by Community Printers | Design donated by Amie Forest Photography donated by Carmen Ferguson, Heartbank Deposits • Gary Dangerfield Photography • Michelle Riddle • Portraits of Grace