NEWSNOTES
Children’s Diabetes Foundation - January through June 2025
Connecting
Highlighting
AN AFTERNOON OF FASHION, PHILANTHROPY, AND INSPIRATION
OnMarch 6, 2025, the Children’s Diabetes Foundation (CDF) held their annual luncheon and fashion show in celebration of The Guild and benefiting patient programs at the Barbara Davis Center for Diabetes (BDC). The event welcomed 575 attendees at the Sheraton Denver Downtown Hotel and raised $360,000 through ticket sales, sponsorships, live and silent auctions, and the live appeal. This year’s featured fashion designer was Marc Bouwer, who joined us to produce a runway show full of glitz, glamor, and gowns that created an unforgettable moment on the Brass Ring Luncheon & Fashion Show (BRL) runway.
A HEARTFELT PROGRAM
CBS Colorado’s Michael Spencer hosted the event, dazzling us with his charm, wit, and passion for the cause. Carol Hamer, our 2025 Guild President, delivered a heartfelt acknowledgment speech, expressing The Guild’s gratitude “to the Denver community for the love and generosity that you continue to show to the Children’s Diabetes
Foundation and The Barbara Davis Center for Diabetes.” The luncheon’s prayer was delivered by Emmy Dahab, an exceptional 9-year-old who has shown remarkable resilience since she was diagnosed with type one diabetes at 2 years old
HONORING CHANGEMAKERS
This year, we proudly introduced the T1D Changemaker Award, honoring individuals who make a lasting impact in the type 1 diabetes community. The inaugural award was presented by CDF Advocate Izzy Jones to Judy McNeil, whose more than two decades of dedicated service with The Guild of the Children’s Diabetes Foundation have left an indelible mark. From chairing the Boo Bash Halloween party to serving as Guild Historian and leading the Brass Ring Luncheon baskets, Judy’s leadership, generosity, and tireless spirit continue to inspire and strengthen our community. Congratulations again, Judy!
SLOVER’S HEROES SHINE
Our “Slover’s Heroes” Walk, held in honor of the late Dr. Robert Slover, shined brighter than ever this year with a heartfelt new tradition. Each of the 30 featured type 1 advocates—true embodiments of Dr. Slover’s legacy of care and advocacy—was paired with a dedicated member of the Barbara Davis Center staff. Side by side, these heroes and their champions took the stage as fun facts about each child were shared, culminating in a powerful finale with all advocates and staff walking together. It was a moving reminder of the partnership, perseverance, and purpose that unite our community.
LIVE AUCTION & SPECIAL APPEAL
Attendees enjoyed lunch while Fundaneer, Halie Behr, kicked off the live auction with five unique packages that raised $37,000. This year’s live auction featured unforgettable experiences and treasures, from VIP meet-andgreets with Barry Manilow in Las Vegas and Rod Stewart at Caesar’s Palace, to an exclusive NYC fashion experience with Marc Bouwer. Guests also bid on a luxury Teton Mountain Lodge getaway complete with spa, dining, and custom accessories, and a breathtaking vintage Art Deco diamond & pearl pendant-brooch. The excitement was palpable as each package sparked spirited bidding.
Following the live auction was a video telling the amazing story of the T1D Strong All Day Long Camps where kids living with type 1 diabetes are offered a place to connect, learn, and have fun alongside others who truly understand their daily challenges. Surrounded by peers who share similar experiences, campers find comfort in knowing they’re not alone— building friendships, confidence, and a sense of community that lasts long after camp ends.
During the special appeal, attendees raised their paddles to make donations ranging from $250 to $25,000. At each donation level, Behr explained specific funding opportunities, such as critical research, device purchases for underprivileged type 1s, support for Guild programs like Helping Hand and T1D Strong All Day Long Camps, and type 1 mental health initiatives, wrapping up with a paddle sweep for low supplies.
A RUNWAY TO REMEMBER
Legendary designer Marc Bouwer’s fashion show unfolded like a cinematic journey, with each scene unveiling bold color stories and dramatic silhouettes. From black shimmering gowns to vibrant jewel-toned dresses, through ethereal metallics, the collection celebrated fashion with glamour, movement, and light. The interplay of textures, fluid fabrics, and rich hues created a dynamic runway experience that was both theatrical and unforgettable.
In total, the event welcomed over 575 attendees and raised over $360,000 through ticket sales, sponsorships, live and silent auctions, and the special appeal. All of this benefited The Guild of the Children’s Diabetes Foundation to help fund research, diabetes awareness and education, assistance for families in need, scholarships for T1D students, year-round T1D day camps, and activities for children and their families.
GRATITUDE & SUPPORT
CDF would like to extend special thanks to our sponsors who made this incredible day possible. The 47th Annual Brass Ring Luncheon & Fashion Show was presented by Eva Schoonmaker Premier sponsors of the event were Boomi, Jay’s Valet, The MacMillan Family, and NexGen Resources with additional support by the Sheraton Denver Downtown Hotel and Gérard Bertrand Cote des Roses. Thank you to Gina Comminello from THE LOOK Salon & Med Spa and Charlie Price for your continuous support of the event. Brass Ring Luncheon’s Official Media Sponsor was Colorado Expression, Broadcast Partner was CBS Colorado, and its Radio Partner was KBCO.
CDF EVENTS
CDF EVENTS
MEET THE DOCTOR
HALIS AKTURK, MD
ENDOCRINOLOGY, DIABETES, AND METABOLISM
A PASSION FOR DIABETES CARE AT THE BDC
We are proud to highlight the incredible individuals at the Barbara Davis Center for Diabetes (BDC) who dedicate themselves to improving the lives of those living with diabetes. We sat down with Dr. Halis Akturk whose journey into diabetes care is as inspiring as his daily work.
HOW DID YOU GET INTO DIABETES CARE?
My uncle had diabetes and passed away at a young age from complications while I was in medical school. That experience inspired me to dedicate my career to diabetes care and research, with the hope of improving outcomes for others.
DO YOU HAVE A PERSONAL TYPE 1 DIABETES CONNECTION?
Yes. My uncle lived with diabetes in Turkey, where I went to medical school. Unfortunately, he faced multiple complications, including kidney failure, vision loss, and amputations, which ultimately led to his passing. His experience deeply influenced my decision to enter this field.
HOW LONG HAVE YOU BEEN WITH THE BARBARA DAVIS CENTER?
Since January 2017.
WHAT MAKES YOUR DEPARTMENT AND
TEAM
AT THE BDC SO UNIQUE?
We’re often involved in testing new diabetes technologies before they receive FDA approval. Being able to help shape the future of diabetes care and contribute to research that improves lives makes our work especially meaningful.
WHAT HAS CHANGED IN DIABETES CARE SINCE YOU HAVE BEEN PRACTICING?
The most significant change has been the rise of hybrid closed-loop systems, or automated insulin delivery. Along with advances in continuous glucose
monitoring, these technologies have transformed type 1 diabetes care by lowering A1C, reducing hypoglycemia, and preventing complications.
TELL ME ABOUT AN EXPERIENCE THAT HAS IMPACTED YOU AS A PROVIDER.
Two Afghan refugee siblings came to the BDC with uncontrolled type 1 diabetes and serious complications. Despite language barriers, we trained them on CGMs and insulin pumps. One of them received a kidney transplant and eye surgeries and now manages her diabetes very successfully. Helping patients like them achieve stability and health is one of the most rewarding parts of my work.
WHAT DO YOU DO FOR FUN WHEN YOU ARE NOT AT THE BDC?
I enjoy watching European soccer, traveling, hiking, reading, and spending time outdoors.
TELL ME A FUN FACT ABOUT YOURSELF.
I’ve traveled to 25 countries. My favorite destinations so far are Spain and Italy.
WHAT IS YOUR FAVORITE COLOR? Blue.
WHAT’S YOUR FAVORITE FOOD OR DISH TO MAKE?
Kebabs, especially lamb.
DO YOU HAVE ANY PETS?
I don’t have any pets.
BDC NEWS
BREAKING BARRIERS:
FLYING WITH TYPE 1 DIABETES
For years, people living with type 1 diabetes (T1D) were told there was one career they could never have: commercial airline pilot. That changed in 2019, when the FAA announced a new pathway for insulin-dependent individuals to earn medical clearance. Today, with programs like Flying with Type 1 Diabetes at the Barbara Davis Center for Diabetes (BDC) a small but growing number of pilots with T1D are now captaining commercial flights.
PILOTING THE PROGRAM
Dr. Halis Akturk, adult clinic endocrinologist at the BDC, has helped pioneer this effort. “To qualify, pilots must be seen every three months by an endocrinologist, use a continuous glucose monitor at all times, and maintain good glycemic control without significant hypoglycemia,” he explains. “They also undergo annual cardiology and ophthalmology exams and submit detailed CGM data every six months. It’s extensive—but with the right preparation and collaboration, it’s achievable.”
Dr. Akturk says nearly ten pilots are now flying for major airlines through the BDC program.
“For years, I told patients with T1D they could be anything except a commercial airline pilot. Now I can tell them: you can do anything.”
FROM DIAGNOSIS TO THE SKIES
One of those pilots is Brynn Lansford, who was diagnosed with type 1 diabetes at age two. “My dad was a commercial pilot, and my whole family was military,” Brynn recalls. “All I wanted growing up was to follow in those footsteps. When I was 12 or 13, my parents had to tell me that being a pilot wasn’t possible with diabetes. That crushed me.” Brynn pursued other paths in medicine, working as a phlebotomist while applying to radiology school. But when the FAA shifted its policy, everything changed. “My dad came home one
day and said, ‘I just flew with someone who has type 1 and is a first officer at Southwest. Do you still want to be a pilot?’” Brynn remembers. “I thought about it for 24 hours, but I knew immediately this was my chance. The next day, I was in a Cessna, and the rest is history.”
MANAGING DIABETES IN THE COCKPIT
Commercial flight requires precision—and so does diabetes management. Brynn has developed a personal routine: intermittent fasting in the morning to keep glucose steady, small low-carb meals or snacks in flight, and close CGM monitoring. “My go-tos are gummy bears and apple juice,” he laughs. “The funny thing is, being in a cockpit is actually perfect for a T1D pilot—every snack you could need is right there.” He also stresses that the FAA approval process is rigorous. Pilots must submit six months of CGM data linked to flight logs, with specific breakdowns of time in range. “It was trial and error at first,” Brynn admits. “But once you understand what they’re looking for, you can meet the standard. The important part is showing stability and safety.”
A DREAM REALIZED
Today, Brynn flies commercially, fulfilling the dream that once felt out of reach. “Sometimes I sit in the cockpit and think, wow, this is really happening,” he says. “It still feels surreal.”
Asked what message he hopes his story sends; Brynn doesn’t hesitate:
“Don’t give up. Build your evidence, lean on your care team, and be persistent. If being a commercial pilot with T1D is possible, then truly—you can do anything.
Read the full interviews on page 20-21
CONNECTION, CREATIVITY, AND COMMUNITY THROUGH ART & WELLNESS
The8th Annual Empowering Patients for Individualized Care (EPIC) Diabetes Conference, hosted by the Children’s Diabetes Foundation and the Barbara Davis Center for Diabetes, was held on May 3, 2025 on the University of Colorado Anschutz Medical Campus. Providing patients, families, caregivers, and healthcare professionals with a unique opportunity to enhance their knowledge and skills in diabetes management within an open and supportive environment.
As one of the most impactful events in diabetes education, the EPIC Diabetes Conference brought together attendees from diverse backgrounds to learn directly from leading diabetes specialists. Through engaging workshops, thought-provoking panels, and interactive Q&A sessions, participants walked away with actionable insights and tools to improve their diabetes care.
FOCUSING ON A HOLISTIC APPROACH
The theme for this year’s event, “Mind, Body, and Soul,” centered on wellness topics to thrive while managing the complexities of diabetes. The conference covered a variety of topics, including:
• Diabetes Technology Updates
• Women’s Health Throughout the Lifespan
• Role of Family, Friends, Support Systems for People with Diabetes
• Insulin Resistance and Weight
This year’s event featured a special session on Exercise Management in Diabetes with Dessi Zaharieva, PhD, from Stanford University. Each session included a concise presentation followed by a dynamic Q&A segment, where attendees engaged directly with leading experts to address their individual questions and concerns.
INTERACTIVE ACTIVITIES
This year’s EPIC Diabetes Conference emphasized fostering community connections through interactive experiences. Guests were encouraged to engage with exhibitors through a diabetesthemed bingo game while also connecting with one another through creative and restorative activities, including Notes for Hope, a collaborative community art project, and a calming sound bath. Together, these experiences created a supportive space where individuals and families affected by diabetes could feel empowered and reminded that they are not alone on their journey.
A COMMUNITY EFFORT
The success of the 8th Annual EPIC Diabetes Conference would not have been possible without the support of our generous sponsors, Abbott, American Diabetes Association, Beta Bionics, Diabetes Resource Nurses of Colorado, Dexcom, Eldorado Water, Jewels for Hope, King Soopers, Mannkind, Medtronic, Omnipod, Sanofi, Tandem, Tidepool, and twiist. Their commitment to advancing diabetes education and care was evident throughout the event.
We also extend our deepest gratitude to the EPIC Committee: Dr. Halis Akturk, Dr. Erin Cobry, Dana Davis, Sydney Lundgren, and Regina Reece, whose hard work and dedication made this year’s conference an extraordinary experience.
CDF EVENTS
CDF EVENTS
RAVE REVIEWS REAL WORDS. REAL IMPACT.
“ Loved the people presenting, so professional and informative.”
“
Really enjoyed the speaker’s knowledge at the diabetes tech update, and that it didn’t feel formal. The Q&A was helpful. I appreciated a place for family and friends to gather and be supported.”
“ “
All
of the speakers were very knowledgeable and presented their information in a way that laypersons like me could understand!”
“
Thank you for the great care and services the BDC provides. We are so fortunate!”
“
Just
wanted to say
thank
you
for all that you do. Learned a lot about resources and it helped my spouse (married 7 years) understand more about diabetes.We are looking forward to going next year!”
These workshops come up with new information every year, or a different way to present info! They remind me hope is out there! Plus I get a kick out of hearing everyone’s alarms going off.”
“
I was impressed with the expertise of the speaker; and they were excellent in covering the topic and answering questions and very approachable afterwards”
“
The information was constructive and something that everyone attended all care about. These specific topics are always changing with data and new information so to have an update on the technology and where we sit with a cure provides great takeaways.
BARBARA DAVIS CENTER FOR DIABETES
MAKING HEADLINES
See how the Barbara Davis Center has been making headlines! Here are some of the top stories from January through June 2025.
PREVENTION & EARLY INTERVENTION
EARLY TYPE
1
DIABETES CLINIC LEADS THE NATION IN TEPLIZUMAB (TZIELD) INFUSIONS
Dr. Kimber Simmons and her team at the BDC’s Early T1D Clinic have administered the tepli-zumab 14-day infusion to over 30 Stage 2 T1D patients—more than any other center in the U.S. On average, the therapy delays disease onset by two to three years. Children’s Hospital Colorado
ASK (AUTOIMMUNITY SCREENING FOR KIDS) PROGRAM EXPANDS FREE EARLY SCREENING
The BDC’s ASK initiative provides no-cost at-home and community screening for type 1 diabetes (and celiac disease), targeting children regardless of family history. This effort ad-dresses the fact that ~90% of T1D cases occur without prior familial diagnosis. type1strong.org
RESEARCH & DATA INSIGHTS
NEW TEDDY STUDY FINDINGS FROM BDC
RESEARCHERS
As part of the TEDDY cohort, BDC investigators reported on interactions between genetics, environmental exposures (e.g., enterovirus B), growth patterns, and early probiotic use in infants—detailing how these factors influence the development of islet autoimmunity and progression to clinical T1D. Children’s Hospital Colorado
BDC’S INVOLVEMENT IN TRIALNET–STOP T1D TRIALS
BDC hosts an active TrialNet team led by Dr. Andrea Steck, participating in prevention trials like STOP T1D (using low dose ATG) focused on delaying progression from Stage 2 to Stage 3 T 1D (trialnet.org). BDC hosts an active TrialNet team led by Dr. Andrea Steck, participating in prevention trials like STOP T1D (using low dose ATG) focused on delaying progression from Stage 2 to Stage 3 T1D. trialnet.org
SPOTLIGHTS FROM THE BDC
ADJUNCT GLP 1 THERAPY IMPROVES OUTCOMES IN T1D WITH OBESITY
At the ADA 2025 meeting, Dr. Halis Kaan Akturk (BDC) presented findings from the ADJUST T1D phase 2 trial: weekly semaglutide (a GLP 1 receptor agonist) used alongside automated insulin delivery boosted time in range to ≥70% and achieved ≥5% weight loss in 36% of obese participants—versus 0% in placebo group ADA Meeting News
ASK (AUTOIMMUNITY SCREENING FOR KIDS) PROGRAM EXPANDS FREE EARLY SCREENING
Q&A With Dr. Akturk: A change to Federal Aviation Administration regulations permitted people with insulin-treated type 1 diabetes to receive first-class and second-class medical certificates, allowing adults with type 1 diabetes to fly commercial airplanes in the U.S. for the first time. Q&A: How adults with type 1 diabetes can become commercial airline pilots
EPIC DIABETES CONFERENCE IN AURORA ADDRESSES UNIQUE NEEDS OF WOMEN https://www.cbsnews.com/ colorado/news/epic-diabetes-conference-colorado-aurorawomen-diabetes/
WHY THESE UPDATES MATTER
• BDC is pioneering early-stage intervention, offering teplizumab infusions to delay disease onset in children before diagnosis.
• Screening innovations like ASK help to identify high-risk individuals early, closing gaps where family history is absent.
• Ongoing involvement in major cohort and prevention studies (TEDDY, TrialNet) supports deeper understanding and testing of novel therapies.
• Local advocacy and events strengthen community ties and awareness in the Denver area.
Learn more about the Barbara Davis Center here
THE CHILDREN’S DIABETES FOUNDATION
NEWS AND NOTEWORTHY
See how the Barbara Davis Center for Diabetes has been making headlines! Here are some of the top stories from January through June 2025.
A ‘WORD OF THANKS’ FROM NEXT MICROGIVING CAMPAIGN FOR HELPING HAND
We were so honored to be the featured nonprofit on July 16, 2025 for a microgiving campaign where small donations come together to make a big impact. A big thanks to Kyle and 9 NEWS for featuring the Children’s Diabetes Foundation and the Barbara Davis Center! You can watch the feature here CDF on Word of Thanks.
CDF’s Helping Hand program continues to assist families in need with insulin, supplies, medical IDs, travel, and more. Learn more about the Helping Hand program here. Helping Hand
CDF LAUNCHES NEW WEBSITE
WE’RE EXCITED TO SHARE THE CHILDREN’S DIABETES FOUNDATION HAS A BRAND-NEW WEBSITE!
Designed with our community in mind, the updated site offers easier navigation, streamlined event information, and more resources for families and supporters. New sections include T1D resources, expanded program pages, ways to get involved, and ways to give.
Explore the fresh look and discover everything CDF has to offer at: ChildrensDiabetesFoundation.org.
SPOTLIGHT ON THE CAROUSEL BALL
Excitement is building for the 39th Annual Carousel Ball! In May, it was announced that legendary singersongwriter Neil Diamond will receive the Inspirational Lifetime Achievement Award, joining an elite group of past honorees. The MacMillan Family will also be celebrated with the High Hopes Tribute Award for their decades of dedication to the cause. Adding to the star power, the Goo Goo Dolls were confirmed as this year’s headline performers, promising an unforgettable evening benefiting the Barbara Davis Center for Diabetes.
HOLLYWOOD MINUTE: NEIL DIAMOND HONORED
Neil Diamond to be honored by the Children’s Diabetes Foundation at The Carousel Ball. CNN Entertainment
NEIL DIAMOND TO RECEIVE INSPIRATIONAL LIFETIME ACHIEVEMENT AWARD AT 2025 CAROUSEL BALL, GOO GOO DOLLS TO PERFORM
Goo Goo Dolls are set to perform at the 39th annual Carousel Ball at the Hyatt Regency Denver on Oct. 11, honoring music icon Neil Diamond. Previous stars who’ve headlined the ball included Sir Elton John, Celine Dion, Whitney Houston and John Legend. MSN
GOO GOO DOLLS TO HEADLINE CAROUSEL BALL HONORING NEIL DIAMOND
The Goo Goo Dolls will perform at the Children’s Diabetes Foundation’s 39th Annual Carousel Ball, taking place on Oct. 11 at the Hyatt Regency Denver. The event will also feature and honor singer-songwriter Neil Diamond with the Inspirational Lifetime Achievement Award. AOL
NEIL DIAMOND TO RECEIVE INSPIRATIONAL LIFETIME ACHIEVEMENT AWARD AT 2025 CAROUSEL BALL, GOO GOO DOLLS TO PERFORM
Goo Goo Dolls are set to perform at the 39th annual Carousel Ball at the Hyatt Regency Denver on Oct. 11, honoring music icon Neil Diamond. billboard
GOO GOO DOLLS WILL HEADLINE 2025 CAROUSEL BALL
The Goo Goo Dolls will take the stage for a good cause this fall: The band is planning to headline the Children’s Diabetes Foundation (CDF)’s Carousel Ball, which will take place on Oct. 11 and benefits research aimed at preventing and curing type 1 diabetes. Rolling Stone
BREAKING BARRIERS: COMMERCIAL AVIATION AND TYPE 1 DIABETES
An interview with Dr. Halis Akturk, endocrinologist at the Barbara Davis Center for Diabetes, and Brynn Lansford, a commercial airline pilot living with type 1 diabetes.
INTERVIEW WITH DR. HALIS AKTURK
CAN YOU BRIEFLY EXPLAIN HOW THE FAA POLICY HAS EVOLVED, AND WHAT ROLE ENDOCRINOLOGISTS PLAYED IN THAT PROCESS?
DR. AKTURK: For decades, people with type 1 diabetes were barred from becoming commercial airline pilots. That changed when the FAA created a new pathway in late 2019. The decision was based on advances in diabetes technology—specifically continuous glucose monitoring (CGM). With CGM, we can document stability, predict risk, and prevent severe lows in ways we couldn’t before.
At the Barbara Davis Center for Diabetes (BDC), we developed one of the first programs in the country to help pilots meet FAA requirements. Our role is to verify their CGM data, monitor their A1C trends, and ensure they are under consistent specialist care. It’s a team effort between pilot and physician.
WHAT CLINICAL CRITERIA DOES THE FAA LOOK FOR WHEN EVALUATING SOMEONE WITH T1D?
DR. AKTURK: The FAA wants evidence of overall stability. That means at least one year of A1C history, six months of CGM data, and consistent specialist followup. They also require cardiology and ophthalmology evaluations, since both the heart and eyes can be affected by diabetes. Above all, they want proof that the pilot can safely manage their blood glucose during all phases of flight. They want strict glucose control as demonstrated by CGM data (e.g. GMI < 6.5, TIR > 70%).
HOW DOES THE RENEWAL PROCESS WORK ONCE A PILOT IS APPROVED?
DR. AKTURK: Pilots must resubmit data every six months. This includes spreadsheets tying CGM readings to flight logs, plus regular medical reports
from their endocrinologist and other specialists. It’s a rigorous process, but it ensures safety for everyone in the air.
WHAT ADVICE DO YOU GIVE TO ADULTS WITH TYPE 1 DIABETES WHO ASPIRE TO BECOME AIRLINE PILOTS?
DR. AKTURK: My advice is to prepare early and build a strong track record of management. Use a CGM consistently, keep detailed logs, and work closely with your care team. It may take time, but if flying is your dream, it’s achievable. For years I had to tell patients, “You can do anything—except be a commercial pilot.” Now, I can finally say: you can do anything.
INTERVIEW WITH BRYNN LANDSFORD
HOW LONG HAVE YOU BEEN LIVING WITH TYPE 1 DIABETES, AND HOW DID YOUR DIAGNOSIS SHAPE YOUR CAREER GOALS?
BRYNN: I was diagnosed at age two, so I don’t remember life before T1D. Growing up, all I wanted was to be a pilot like my dad, who flew commercially, and to follow my family’s military tradition. But when I was 12 or 13, my parents sat me down and explained that having diabetes meant I couldn’t be a commercial pilot. That was crushing.
WAS BECOMING A PILOT ALWAYS YOUR DREAM, OR DID YOUR AMBITION EVOLVE OVER TIME?
BRYNN: It was always my dream. But since it wasn’t possible, I shifted. I studied medicine and worked as a phlebotomist while applying to radiology school. I thought that was the path I’d take. Then, in 2019, everything changed. My dad came home one day and said, “I just flew with someone who has type 1 and is now a first officer at Southwest. Do you still want to be a pilot?” The next day, I booked a flight lesson in a Cessna— and that was it. I knew I had to pursue it.
WHEN YOU DECIDED TO PURSUE COMMERCIAL AVIATION WITH T1D, HOW DID YOUR ENDOCRINOLOGIST’S GUIDANCE SHAPE YOUR APPROACH?
BRYNN: Dr. Akturk was instrumental. He knew exactly what the FAA would be looking for and helped me build my data package—A1C records, CGM downloads, and stability reports. He made sure we were tracking the right metrics from the very beginning. That collaboration was key.
CAN YOU DESCRIBE YOUR PREFLIGHT AND IN-FLIGHT DIABETES MANAGEMENT ROUTINE?
BRYNN: Before a flight, I make sure my glucose is in range and stable. I use intermittent fasting in the mornings, which helps me start steady. Inflight, I eat small, low-carb meals or snacks and monitor my CGM constantly. I always have quickacting carbs—gummy bears and apple juice are my go-tos. Funny enough, the cockpit is the best place for a T1D pilot—everything you need is right there.
DOES YOUR CO-PILOT PLAY A ROLE IN YOUR DIABETES MANAGEMENT?
BRYNN: Transparency is important. My copilot knows I have type 1, and I let them know my plan and backup plan. If I need a quick break to correct a low or step away for a snack, they cover. It’s really just teamwork—like any other aspect of flying together.
WHAT WAS THE MOST CHALLENGING PART OF NAVIGATING THE FAA APPROVAL PROCESS?
BRYNN: The paperwork. Hands down. The FAA wants every detail—six months of CGM data tied to flight logs, time-in-range percentages, specialist reports. At first, it was overwhelming. But once I understood what they wanted, it became manageable.
HOW HAVE YOU PERSONALLY AND PROFESSIONALLY BEEN IMPACTED BY BEING APPROVED?
BRYNN: Personally, it’s the realization of a lifelong dream. Every time I sit in the cockpit, I think, “Wow, this is really happening.” Professionally, it’s opened doors I never thought possible. It feels surreal.
HOW HAVE YOUR COLLEAGUES IN THE AVIATION COMMUNITY RESPONDED TO YOUR JOURNEY?
BRYNN: The response has been overwhelmingly positive. The Air Line Pilots Association (ALPA) has been supportive, and other pilots with T1D have reached out to connect. There’s a sense of community, and it feels like the perception of what’s possible with diabetes is changing.
WHAT MESSAGE DO YOU HOPE YOUR STORY SENDS TO OTHERS WITH T1D?
BRYNN: Don’t give up on your dream. It may take time, persistence, and a lot of data, but it’s possible. If someone with type 1 can be a commercial airline pilot—something once thought impossible—then truly, you can do anything.
SPOTLIGHT
Children’s Diabetes Foundation NewsNotes is published biannually by the Children’s Diabetes Foundation. If you would like to submit artwork, an article or letter to NewsNotes, please send your submission to cdfcares@childrensdiabetesfoundation.org.
Miriam Andolini, Editor-in-Chief Miriam Andolini, Graphic Designer
PARTNER SPOTLIGHT
SUPPORTING THE WHOLE CHILD
ADDRESSING THE OVERLAP BETWEEN TYPE 1 DIABETES AND DOWN SYNDROME THROUGH MIND-BODY PRACTICES
By Stefanie R. Gross, Executive Director, Move Through Yoga
Children with intellectual and developmental disabilities (I/DD), including those with Down syndrome, are increasingly recognized as an underserved population within chronic disease care. One area of growing concern is the higher prevalence of type 1 diabetes (T1D) in children with Down syndrome, and the complex medical, emotional, and behavioral challenges this dual diagnosis presents. Addressing these challenges requires more than medical interventions—it calls for holistic, accessible, and emotionally intelligent approaches to care.
At Move Through Yoga, we specialize in traumaconscious, adaptive yoga programming for individuals with I/DD. Through our work in schools and community settings, we’ve seen the profound impact that mind-body practices can have on stress management, self-regulation, and health outcomes—especially for those navigating chronic conditions like T1D.
A HIGHER RISK OF AUTOIMMUNE CONDITIONS IN DOWN SYNDROME
Children with Down syndrome are at markedly increased risk for several autoimmune conditions, including type 1 diabetes. This is largely due to differences in immune system regulation linked to the trisomy of chromosome 21. According to a nationwide Danish study, the prevalence of Down syndrome in patients with type 1 diabetes was over four times higher than in the general population (Anwar et al., 1998).
Recent research from the UK using electronic
health records further emphasizes this risk: among individuals with Down syndrome aged 15–24, the incidence of type 1 diabetes was six times higher than among peers without Down syndrome (Drew et al., 2022). In many of these cases, T1D onset occurs earlier and may present with atypical symptoms—complicating diagnosis and timely management.
THE CHALLENGE OF STRESS AND SELFMANAGEMENT IN DUAL DIAGNOSES
Managing type 1 diabetes is already a complex, daily task. For children with I/DD—including communication challenges, sensory processing differences, or executive functioning delays— those demands can become even more overwhelming.
Compounding this is the physiological impact of stress: elevated cortisol can directly impair glycemic control. A study in Diabetes Care found that psychosocial stress negatively impacts glucose metabolism, contributing to blood sugar variability and burnout in young people with T1D (Lustman et al., 2006).
Children with both Down syndrome and T1D often require additional support to manage not just their physical health, but their emotional and cognitive resilience.
POWER OF MIND-BODY PRACTICES
Mind-body practices like yoga, breathwork, and mindfulness offer a unique, research-supported way to reduce stress and foster greater self-awareness and regulation. For children and young adults with I/ DD, these practices can also promote:
Improved mood and decreased anxiety
• Better interoception (recognizing internal body cues like hunger or fatigue)
Decreased cortisol and improved blood glucose stability
• Increased engagement in health routines
• Enhanced quality of life for families and caregivers
A recent randomized controlled trial found that mindfulness meditation improved glycemic control and reduced diabetes-related distress in adolescents with T1D (Shukla et al., 2021). Additional studies on adaptive yoga for children with autism and Down syndrome show significant improvements in selfregulation, mood, and functional independence.
At Move Through Yoga, we adapt these practices using visual aids, accessible movement options, co-regulation techniques, and trauma-informed language—ensuring that all participants feel safe, successful, and seen.
BUILDING INCLUSIVE SOLUTIONS FOR LIFELONG HEALTH
Our trauma-conscious, adaptive yoga model supports children and young adults with I/DD in learning tools for self-care that extend beyond the yoga mat. Whether it’s a breathing strategy used before a glucose check, a moment of stillness during a stressful school day, or the sense of pride in mastering a new pose—these moments build confidence and improve quality of life.
We believe that health equity includes emotional regulation, body autonomy, and community belonging. And when we create spaces that support the whole child, especially those managing complex health needs, we move closer to that vision.
ABOUT MOVE THROUGH YOGA
Move Through Yoga is a nonprofit organization dedicated to delivering adaptive yoga and wellness programming to individuals with intellectual and developmental disabilities. We partner with schools, care providers, and families to make inclusive, traumaconscious movement accessible and empowering for every student, regardless of ability.
For more information, visit: www.movethroughyoga.org
REFERENCES
1. Anwar, A. J., Walker, J. D., & Frier, B. M. (1998). Type 1 diabetes mellitus and Down’s syndrome: Prevalence, management and diabetic complications. Diabetic Medicine, 15(2), 160–163.
2. Drew, J., Leslie, R., & Sullivan, K. (2022). Diabetes and Obesity in Down Syndrome Across the Lifespan: A Retrospective Cohort Study Using UK Electronic Health Records. Diabetes Care, 45(12), 2892–2899.
3. Lustman, P. J., Anderson, R. J., Freedland, K. E., de Groot, M., Carney, R. M., & Clouse, R. E. (2000). Depression and poor glycemic control: A meta-analytic review of the literature. Diabetes Care, 23(7), 934–942.
4. Shukla, R., Gupta, M., Agarwal, N., & Bajpai, A. (2021). Mindfulness Meditation as Adjunctive Therapy to Improve the Glycemic Care and Quality of Life in Patients with Type 1 Diabetes. Medical Sciences, 9(2), 33.
SUPPORT GROUPS
you are not alone with type 1 diabetes
The Children’s Diabetes Foundation (CDF) holds diabetes support groups once a month in 10 Colorado locations, one Wyoming location, and two virtual groups. These groups are for anyone who is affected by type 1 diabetes – whether you are the type 1 yourself or the friend, family, loved one, or caregiver of a type 1 All ages and all relationships to type 1 diabetes are invited unless otherwise stated
Our Support Groups:
Denver Metro Area – all ages and relationships to diabetes
Colorado Springs, CO – all ages and relationships to diabetes
Northeastern Colorado (Sterling, Iliff, Merino, Hatxun, Crook, Fleming) – all ages and relationships to diabetes – meets every 2 months
“The Keepers” in Denver – parents & caregivers of teens with type 1 Fort Collins, CO – for kids 18 and under with type 1 diabetes and their caregivers Central Rockies (Lake County, Leadville, Summit County, Eagle County, and Chaffee County) –all ages and relationships to diabetes
Cheyenne, WY – all ages and relationships to diabetes Rifle, CO (Grand Junction, Glenwood Springs, Delta, Grand Mesa) – all ages and relationships to diabetes
Douglas County, CO – all ages and relationships to diabetes
Digital – Virtual meetings for anyone regardless of location, age, and connection to diabetes
Teen Connection Community New! (Virtual)- For those with type 1 diabetes between the ages of 13 and 18
Southeastern Colorado (Pueblo, Cañon City, Lamar, etc ) New! – All ages and relationships to diabetes
You’ll love being a part of the diabetes community! Sign up to receive notifications about the specific time, date, and location of each meeting. Follow the QR Code to the CDF website for more information.
Join our Continuous Giving Member Program!
CHILDREN’S DIABETES FOUNDATION
BOARD MEMBERS
EXECUTIVE BOARD
Richard Abrams, MD
David Asarch
Lisa Corley
Stephen Daniels, M.D., PhD
Barbara Davis, Chairman
Dana Davis, CDF Executive Director
Nancy Davis Rickel
Dan Feiten, M.D.
Lori Finch, Guild Representative
Sandip Garg
Shane Hendryson, Secretary
Arlene Hirschfeld, Board Emeritus
Deidre Hunter
Shawn Hunter, Treasurer
Steve Lucas
Marian Rewers, M.D. Ph.D.
Stacy Robinson
Ken Rickel
Joe Smolen, Vice-Chairman
John H. Sampson, MD, PhD, MBA, MSHc
Cameron van Orman
Cindy Wells
SCIENTIFIC ADVISORY BOARD
Richard S. Abrams, M.D. Director, Colorado Preventive Medicine, Rose Medical Center; Clinical Professor of Medicine, University of Colorado Denver
Mark Atkinson, Ph.D. Professor of Pathology & Pediatrics, Director, University of Florida Diabetes Institute
Ezio Bonifacio, Ph.D. Professor for Preclinical Approaches to Stem Cell Therapy, Center for Regenerative Therapies, Dresden, Germany
Robert Eckel, M.D.
Professor of Medicine, Physiology and Biophysics, University of Colorado School of Medicine
Matthias Hebrok, Ph.D. Professor in Residence and Director, Diabetes Center, University of California, San Francisco
Steven Kahn, M.B., Ch.B. Professor of Medicine, Director of the Diabetes Research Center, University of Washington
Rudolph Leibel, M.D.
Professor of Pediatrics and Medicine, Co-Director, Naomi Berrie Diabetes Center, Columbia University
Alvin Powers, M.D.
Professor of Medicine, Molecular Physiology/Biophysics, Division Director, Vanderbilt University
William Tamborlane, M.D.
Professor of Pediatrics, Yale University School of Medicine
CHILDREN’S DIABETES ADVISORY BOARD MEMBERS AND GUILD PRESIDENTS
THE GUILD PRESIDENTS
Amy Davis 1978
Kay Stewart 1981
Carol Roger 1982
Joy Burns 1983
Charlotte Tucker 1984
Karen Aylsworth 1985
Carol Roger 1986
Norma D’Amico 1987
Melissa Tucker 1988
Janet Knisely 1989
Loretta Tucker 1990
Donna Douglas 1991
Jane Weingarten 1992
Jamie Angelich 1993
Nancy Cowee 1994
Georgia Imhoff 1995
Helenn Franzgrote 1996
Linda Broughton 1997
Marty Jensen 1998
Suzy Love 1999
Gretchen Pope 2000
Sally Frerichs 2001
Helen Hanks 2002
Diane Sweat 2003
Bonita Carson 2004
Margy Epke 2005
Chris Foster 2006
Debbie Gradishar 2007
Sally Newcomb 2008
Gail Johnson 2009
Sharon Kamen 2010
Judy McNeil 2011
Gina Abou-Jaoude 2012-13
Dalyla Creaghe 2014
Shelley Lucas 2015
Tangy Buchanan 2016
Christy Alberts 2017
Barb Oberfeld 2018
Cheryl Lebsock 2019
Lisa Corley 2020-21
Lori Finch 2022
Katie Grassby 2023
Lori Finch 2024
ADVISORY BOARD
Sir Michael Caine
Mrs. Lisa Corley
Mr. and Mrs. Robert A. Daly
The Honorable Diana DeGette, U.S. House of Representatives, Colorado
Mr. Neil Diamond
Mr. Placido Domingo
Mr. John Elway
Mr. David Foster
Mr. Kenny G
Mr. David Geffen
Mr. Magic Johnson
Ms. Sherry Lansing
Mr. Jay Leno
Mr. Lionel Richie
Mrs. Adrienne Ruston Fitzgibbons
Mr. George Schlatter
Ms. Maria Shriver
Ms. Brenda Richie
Ms. Barbera Thornhill
Miss Joan van Ark
Mrs. Cindy Wells
Mr. Gary L. Wilson
Mr. Stevie Wonder
See complete list at ChildrensDiabetesFoundation.org
Founding President
Amy Davis, 1978
