Fall 2013 Glennon Magazine

Cardinal Glennon Children’s Foundation

glennon.org

Saving Lives Around the World page 14

Fall 2013, Volume 32, Number 2

VIEWPOINT

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racy was 5 years old when she presented my portrait to me. She drew me with a smile. I viewed her gift as both a thank you and a reward. It is an honor to earn the thanks of a child. In the ensuing 37 years, my office at Cardinal Glennon has moved multiple times. The new office becomes mine only when I hang the old portrait on the new door.

I have not been allocated nearly enough words in this space to list the changes that I have witnessed during my 46 years at Cardinal Glennon. I walk through one new building to reach another, even newer building.

I request images that allow me to see deep within a child with remarkable clarity. I begin a treatment plan once unimagined and now routine. I can turn in any direction and find help from a colleague with a keen intellect, outstanding technical skills and an unwavering dedication to children and families.

I peek at the future behind construction fences and in research laboratories.

Dr. O’Connor by Tracy Ann Helfrich, 1976 Pencil on Pink Paper.

There are also constants.

The staff at Glennon continues to add a soft voice and warm touch to the hardness of modern machine. Parents and children still say thank you.

None of this would be possible without the support of many donors over many years. Gifts have included 10-cent donations in the 1950s, each to buy a brick to build the original hospital, and large donations that have helped us add hospital wings, major departments and state-of-the-art technology.

Most gifts have been somewhere in between. Collectively they have played a major role in what I see around me and, more importantly, in the lives of thousands of children.

Thank you comes in many forms. There may be a formal letter, a personal call, a handwritten note, a public acknowledgment, a plaque, inclusion in a donor listing, etc. If I could arrange a personal thank you for each gift, it would not be any of those. I would have Tracy draw your portrait, with a smile, in pencil on pink paper, to hang on your door.

Dennis O’Connor, M.D.

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Volume 32, Number 2 Cardinal Glennon Children’s Foundation BOARD OF GOVERNORS Archbishop James G. Castellano Robert J. Carlson Chairman Finance Chairman of the Board Allen D. Allred Thomas E. Hilton Secretary President Dan Buck James G. Brennan Executive Director First Vice President June L. Pickett Craig E. LaBarge Assistant Vice PresidentSecond Vice President Governance and Archives James G. Koman Chairman Investment Subcommittee Lynn Beall Cheryl Boushka J. Michael Bruno Julian L. Carr Jr. Molly N. Cline, PhD Gerald B. Cohn Bob Costas Darryl W. Davis Dan Dierdorf John F. Eilermann Douglas Fabick Walter J. Galvin Dennis G. Gipson Sherlyn Hailstone John F. Hefele Michael H. Heinz Edward T. Hempstead Edward D. Higgins Nicole Holland Leslee Holliday Chris Howard Dennis J. Jacknewitz John C. Kueneke Dana M. Labarge Bob Leonard

Marian V. Mehan Maureen Moore Thomas M. Noonan Dennis O’Connor David Peacock Christopher R. Pronger Jeffry N. Quinn Jerry E. Ritter Sr. Mary Jean Ryan, FSM Farouk Sadiq Jack Schreiber Thom Sehnert Bryan M. Swift William P. Thompson Raymond T. Wagner, Jr. James F. Whalen Robert J. Witterschein Jim Woodcock EX-OFFICIO

Brian Behrens Virginia Hartman Robert Hawkins

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Contents FEATURES

14 18 24 26 32 36

Saving lives around the world

Guatemalan boy receives lifesaving surgery

Pass it on

The 2013 Homers for Health season kicks off with the Game Ball Relay!

DEPARTMENTS

2 AROUND GLENNON Find out the latest news

8 GLENNON GATHERINGS Pictures from recent events

12 CORPORATE CORNER Fifth Third Bank

38 AMBASSADOR’S DEPARTMENT Mission in Motion; 2013 ACA Awards

Thank you for being a friend

42 GLENNON KIDS

Go for it

44 PARTNERS in PARENTING

Mary and Friends

Diabetes and sports stick together

First Glennon Gallop a success!

A white hot affair

A Healing Spirit Glennon Sunday

To share a grateful patient experience, a donor story or a volunteer effort, please contact Rose Fogarty, Director of Marketing and Communications at 314.577.5605 or rose_fogarty@ssmhc.com

Anne Marie Fraser

Soothing Fears of Disaster

58 WHERE are they NOW? Stan Lawson, M.D.

GLENNON FRIENDS

46 OUR FRIENDS

The Glennon Circle

48 GIFTS RECEIVED

Listing of our supporters

ON THE COVER World Pediatric Project brings Guatemalan boy to SSM Cardinal Glennon for lifesaving surgery.

Around Glennon

Friends Expand Dana Brown NICU

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he 60 private rooms were often filled to capacity in the Dana Brown Neonatal Intensive Care Unit at SSM Cardinal Glennon Children’s Medical Center.

“We had to open a temporary NICU with six additional beds. After about a year we looked at volume trends and the population and decided we needed to add

A large conference room and a family waiting room were moved outside the unit.

The new patient rooms, which entered service on July 31, match the existing ones in size and amenities.

The project cost approximately $1,500,000 and was funded by donors to the Cardinal Glennon Children’s Foundation.

The project cost approximately $1,500,000 and was funded by donors to the Cardinal Glennon Children’s Foundation. more rooms,” says Damon R. Harbison, vice president of operations. “We came up with a plan to add as many rooms as we could in the current infrastructure. We removed some non-essential, nonclinical areas to build out five new rooms.”

“SSM Cardinal Glennon is a leader in providing high quality care to the neonatal patients that need these resources,” Harbison says.

“Without the collaborative relationship with the Cardinal Glennon Children’s Foundation and those that are financially generous to our cause, these

Susan Rozier, staff nurse in Dana Brown NICU attends to patient

vital projects would not become reality.”

The Dana Brown NICU, opened in 2007 in the new West Tower at SSM Cardinal Glennon, was the only allprivate NICU in the St. Louis

area. Each room is furnished for parents to sit or sleep at their baby’s bedside around the clock if they wish. Special rooms are designed to care for twin babies.

SSM Cardinal Glennon programs

ranked among nation’s best

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he pediatric heart and neonatology programs at SSM Cardinal Glennon Children’s Medical Center were ranked among the country’s leaders in U.S. News & World Report’s 2013-14 Best Children’s Hospitals.

SSM Cardinal Glennon ranked 46th in Pediatric Cardiology/Heart Surgery and 45th in Neonatology. The rankings highlight the top 50 U.S. hospitals in 10 pediatric specialties.

“Cardinal Glennon deserves high praise,” says Avery Comarow, health rankings editor at U.S. News. “Ranking shows the dedication and expertise that Cardinal Glennon brings to the care of children who need those qualities the most. We think it is important to identify and call attention to pediatric centers like this one.”

The medical center has made significant investments in its heart program, opening the Dorothy and Larry Dallas Heart Center in 2009 and the region’s only pediatric hybrid cardiac catheterization suite in 2011.

“We are grateful to be recognized as a team because that is truly our approach to caring for children,” said Dr. Kenneth Schowengerdt, medical director of cardiology and Wieck-Sullivan professor of pediatrics at Saint Louis University School of Medicine.

The Dana Brown Neonatal Intensive Care Unit was recently expanded from 60 to 65 all-private rooms. It is classified as a Level IV NICU, the highest designation. The center’s neonatologists staff the Level III NICU at SSM St. Mary’s Health Center and support nurseries at other regional hospitals.

“Our team constantly strives to provide the highest level of care to the smallest and most vulnerable babies using the latest technology,” said Dr. Farouk Sadiq, medical director of neonatology and associate professor of pediatrics at Saint Louis University School of Medicine.

nation’s best 2 • Cardinal Glennon Children’s Foundation

Our love for kids just keeps on growing!

NOW OPEN

New Knights of Columbus Developmental Center Opens

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he Knights of Columbus Columbian Charities Missouri State Council established the first developmental center in the region for children with special needs in 1981. Because of the exceptional health care and service provided in the Knights of Columbus Developmental Center at SSM Cardinal Glennon Children’s Medical Center, more space was needed to accommodate the center’s needs. Open in Spring 2013, a new 11,000 square-foot space was unveiled, made possible in part by a generous $251,000 contribution from the Knights of Columbus of Missouri and Illinois, and the Supreme Council, making it

the largest center for autism in the Eastern Missouri.

The new center specializes Psychology and Psychiatry and treating patients with language disorders, cerebral palsy, intellectual disabilities, attention deficit-hyperactivity disorder (ADHD) and acquired and traumatic brain injuries.

This specialized treatment is made possible with two new observation rooms fitted with two-way mirrors, more Members of the Knights of Columbus accepting photo of the new center.

space for Higgins, the therapy dog; indirect lighting to make kids feel more comfortable; larger exam rooms; a new conference room and parent education programs; and a grand, modern entrance with room for kids to play. The new center’s exam rooms and play areas are designed to be a soothing and comforting space for patients and families and help children with autism who often struggle with too much stimulation and crowds.

The center is experiencing rapid growth as a result of the new facility, located just behind the medical center. In January 2013, two full-time speech therapists and a parttime occupational therapist were added to the KOC staff.

In 2012, the center had 185

An open house of the new center was held on May 15, 20i3.

patient visits per month, compared to the 494 patient visits per month they are seeing now.

This new and vibrant center was made possible through the continuous support of the Knights of Columbus Councils, the generosity of the community

This new and vibrant center was made possible through the continuous support of the Knights of Columbus Councils, the generosity of the community and exceptional partnerships with Children’s Miracle Network Hospitals of Greater St. Louis and the Glennon Guild.

and exceptional partnerships with Children’s Miracle Network Hospitals of Greater St. Louis and the Glennon Guild. Additional support came from the St. Louis Archdiocese, through Glennon Sunday donations in 2012 and various other donors, whose generosity is proof that one can make a make a difference in the life of a child.

The Knight of Columbus Developmental Center staff pose with Knights for image of new building.

glennon.org Fall 2013 • 3

Around Glennon SSM Cardinal Glennon debuts

new location for patients with PIDDs

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atients diagnosed with Primary Immune Deficiency Disorders (PIDDs) now have a newer, more convenient location for evaluation and treatment. In September, SSM Cardinal Glennon Children’s Medical Center debuted the new location of its Jeffrey Modell Center, designed to diagnose and treat patients with PIDDs. The disorders, typically inherited and carried in the genes, cause defects in a patient’s immune system, resulting in repeated infections and other health problems.

Patients often receive regular infusions of gammaglobulin to

“Jeffrey Modell Diagnostic and Research Centers for Primary Immunodeficiency Disorders are recognized for expertise in the diagnosis and management of children with primary immunodeficiency and we’re the only one in the metropolitan region...” control their disease and symptoms. The new facility, is located closer to the hospital’s front entrance and near other outpatient clinics, has four exam rooms and 10 infusion areas.

“Jeffrey Modell Diagnostic and Research Centers for Primary Immunodeficiency Disorders are recognized for expertise in the diagnosis and management of children with Nurses’ Station primary immunodeficiency and we’re the only one in the metropolitan region,” says Alan P. Knutsen, M.D., professor and director of pediatric allergy and immunology and director of the Jeffrey Modell Diagnostic and Research Center for Primary Immunodeficiencies at SSM Cardinal Glennon. “This new center will improve the care we provide these children.”

4 • Cardinal Glennon Children’s Foundation

Infusion Room SSM Cardinal Glennon sees more than 500 patients annually with PIDDs. In addition to helping these patients, the new facility will also be used by allergy patients who are referred for diagnosis and treatment. Oral food challenges (OFC) are performed as a diagnostic test for food allergies in the center. In addition to Dr. Knutsen, the medical team includes Drs. Bradley Becker and Katie Convers.

Architectural renderings courtesy of Christner, Inc.

Our love for kids just keeps on growing!

Brighten your Christmas

with Cards for Kids

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Hannah Chaurin, age 14

his holiday season, brighten your Christmas by sending your loved ones Cards for Kids! This little game of friendly competition allows area school children to display their best artistic talents, while helping kids at the same time. Children submitted their holiday drawings for entry and five winners were selected based on creativity. Once again, St. Paul of Fenton dominated with four out of five winners and Knights of Columbus Developmental Center patient Paul Backes also joined in, drawing his own rendition of a church in a Christmas setting.

You can customize your card by choosing from a variety of sentiments for family, friends and clients. A pack of 20 cards and envelopes can be purchased for a $20 donation. Buy online at glennon.org. No computer?

Jordan BeSore, age 14

Paul Backes, age 16 SSM Cardinal Glennon Patient

No problem. Order by phone at 314-577-5605 or 1-800-269-0552.

Last season Cards for Kids raised $35,849.25 for SSM Cardinal Glennon.

Megan Caress, age 14

Emily Thrower, age 14

Jessie Deutschmann, age 10

St. Louis Cord Blood Bank

first in the region to receive FDA approval

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he St. Louis Cord Blood Bank at SSM Cardinal Glennon Children’s Medical Center is now the first bank in the region and the fourth of only five in the world to receive approval from the U.S. Food and Drug Administration (FDA) to manufacture and distribute cord blood-derived stem cell products.

Cord blood, a non-controversial source of stem cells found in the umbilical cord of newborn babies, can be used to treat more than 70 diseases, including leukemia and lymphoma. Formerly regarded as an investigational new drug, the FDA now classifies and regulates cord blood stem cell products used for these treatments as biologic drugs.

“With this recognition from the FDA, patients and their physicians can be assured that we have met every requirement

to produce the highest “...assured that we have quality cord blood products met every requirement to and provide life-saving produce the highest quality treatment in the safest cord blood products and way possible,” said Donna provide life-saving treatment Regan, director of the St. in the safest way possible...”

Louis Cord Blood Bank.

It took 18 months of rigorous review and site visits before the St. Louis Cord Bank was granted licensure by the FDA. Products in the bank’s inventory are listed on the Be the Match® registry, where physicians from around the world can search for and request units that are matched to their patients. Of the 35,000 cord blood transplants performed globally, the St. Louis Cord Blood Bank has provided nearly 7 percent of all transplants occurring worldwide. Since the bank was established in 1996, more than 130,000 families have donated their baby’s umbilical cord blood to the St. Louis Cord Blood Bank.

glennon.org Fall 2013 • 5

Around Glennon

Celebrities Giving Back

Matt Holliday makes a 10th birthday one to remember!

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layers from the St. Louis Cardinals can often be seen roaming the halls, visiting with the kids of SSM Cardinal Glennon−their heroes.

During a visit in July, Matt and Leslee Holliday were informed that in one room, cancer patient Alex Wangerin was celebrating his 10th birthday. Excited by this news, they couldn’t wait to pop in and say hello. Much to Alex’s surprise, Matt sat on his bed, signed a ball for him and just chatted for a while.

Straight from that visit, Matt drove to Alex Wangerin showing his autographed Matt Busch Stadium to face Holliday home run baseball. the Houston Astros.

Being our lead Homers for Health Chairman, Matt surely had Alex on his mind when he stepped up to the plate, knocking a homer into the stands, lighting up our Homers for Health signage as the fireworks went off around the ballpark!

Matt and Leslee Holliday making one of their many visits to the medical center.

This day just happened to be a birthday Alex would never forget.

Some lucky fans caught the ball which they were sure to cherish−but not for long. Matt had the clubhouse manager though it was nearing midnight, Matt visited a sleeping Alex and track the fans down and offered them an autographed bat in his mom to deliver the home run ball, autographed for his 10th exchange for the home run ball. birthday. Surely a birthday Alex will never forget!

Unbeknownst to everyone, after the game Matt took a detour on his way home and came back to SSM Cardinal Glennon. Even

Jason Motte answers Twitter’s call to help

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ason Motte spent the better half of the Cardinals 2013 season on the DL, recovering from arm surgery he had in May. When he heard about SSM Cardinal Glennon patient Tyler Arnett’s injury via Twitter he made a detour on the way home from a physical therapy session at Busch to make a surprise visit. Tyler, a catcher for the St. Louis Storm was injured

St. Louis Cardinal Jason Motte with 13-year-old patient Tyler Arnett

6 • Cardinal Glennon Children’s Foundation

as he was heading to football practice, leaving him partially paralyzed and unable to walk. When Motte showed up at SSM Cardinal Glennon on a moments notice, he was told Tyler had been moved to Ranken Jordan the night before.

That didn’t stop Motte from wanting to talk to Tyler about how important it is do everything his rehab

therapists tell him to do. Motte followed a foundation staff member in his truck for 15 miles and surprised Tyler by showing up at Rankens Maryland Heights facility.

Thanks to Jason’s inspiration and a lot of hard work, Tyler is now back at school and using a walker, determined to make it back on the field in the spring.

Thanks Jason, for all you do for our kids!

Our love for kids just keeps on growing!

Right: Former St. Louis Blues player Jamal Mayers brings the Stanley Cup to the medical center.

Below: Jason Motte and Matt Adams deliver Cardinals Build-A-Bears to patients in their rooms.

Below: Adam Wainwright with Cheyenna Ames on a spring visit.

Above: Bob Costas makes a stop after unveiling Stan’s Number Six. Right: Joe Kelly helps with the stlh4h online auction on KTVI Fox 2.

Above and Center Photo: Allen Craig makes use of his time on the DL to visit patients in September.

Left: Joe Kelly and Trevor Rosenthal team up for kids!

glennon.org Fall 2013 • 7

GLENNON GATHERINGS

April 20, 2013, Fox Theatre, St. Louis, Mo.

Raised $751,765 for the Bob Costas Cancer Center at SSM Cardinal Glennon Children’s Medical Center

Above: Chris Hugge, M.D. (left) escorts SSM Cardinal Glennon patient Arianna Dougan on stage to give thanks to the many supporters of the 25th Bob Costas Benefit.

Left: Bob Costas Committee

Frank & Pattie Viverito, Michael & Maureen Moore, Bob and Mitch Mayers

Norm and Pam Davis

John Mellencamp

Michael, Noemi, Peter and Monica Neidorf

Holly Buck, Rose & James Brennan, Sherlyn Hailstone, Dan Buck, Karen and Jim Castellano

8 • Cardinal Glennon Children’s Foundation

Brian Regan

Bill and Connie McDermott, Mary Schenkenberg, Colleen McDermott, Elizabeth and Tom Hare

Our love for kids just keeps on growing!

ACA Awards June 3, 2013 St. Louis Zoo Living World

Grateful families honoring their doctors, nurses and caregivers.

Crowd applauses as Dr. Saadeh Al-Jureidini, M.D. is recognized for the Lifetime Achievement Award.

Dan Buck

Dr. Saadeh Al-Jureidini, M.D.

Dan Buck, Jerry Krause, David Ish, Kim Whoberry, Kathy Kuhlenbeck

Nan Winters, Adoria Woods

Dr. Saadeh Al-Jureidini, M.D., William Keenan, M.D.

July 27, 2013 The Magic House, St. Louis, MO

Raised: $27,481 to benefit the Children’s Fund.

glennon.org Fall 2013 • 9

GLENNON GATHERINGS

This inaugural event raised $80,000 for Danis Pediatrics at SSM Cardinal Glennon Children’s Medical Center.

Gallop Kick-off Party August 8, 2013

Glennon Gallop

August 24, 2013, Blue Heron Polo Club, Defiance, Mo. Above: Paul vonGontard and Billy Bush Anne Danis, Peter vonGontard, Ginny and Steve Orthwein, Lou Glaser

Alana & Molly Sansone, Tony Bommarito Sr., Maria Sansone

Mike Worley, Kristi Skor

Doug Sansone

Sarah Chiodini, Dawn Van Houten, Matushka Briggs, Kelly Bick

David vonGontard, Steve Orthwein, Peter vonGontard Jr., Paul vonGontard

D.J. Sansone, Tony and Mary Anne Sansone Tony Bommarito jr., Tony Bommarito Sr. Reprinted with permission from Ladue News

Our love for kids just keeps on growing!

Ann and Ray Wagner

Chris Howard, Linda Howard, Michael Burke, Dixie Platt

Dr. Matthew Broom

Linda Tackes, Matushka Briggs

Reprinted with permission from Ladue News

Photo courtesy of Town and Style Saint Louis

Greg Siwak, Doug Sansone, Nick Cifuni, Billy Busch Photo courtesy of Town and Style Saint Louis

Peter & Susie vonGontard

Photo courtesy of Town and Style Saint Louis

James Brennan, Dana and James Whalen

Sept. 6, 2013 Columbia Golf Course

Raised: $27,481 to benefit the Children’s Fund.

Adam Stowers - Fabick Team

Lori Rippehmeyer, Jenny Kipping, Rob Eilermann, Lou Mund, John Hefele

Hank Rohwedder, Greg Durst, David Gerber

Chris Ferrari, Jeff Schneidler, Jeff Todt

Tom Hilton, Scott Givens, Chris Pegano

Mike Walton, Bill Hawn, Paul Faus

glennon.org Fall 2013 • 11

CORPORATE CORNER

Shawn Hagan, president and chief executive officer of Fifth Third Bank, reads their custom activity book “Bubbles of Hope” to patient Olivia Little.

Hope and wellness go hand-in-hand “

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ou wouldn’t think that a bank and a hospital have similarities, but we think they do,” says Shawn Hagan, president and chief executive officer of Fifth Third Bank in St. Louis.

The bank is a major benefactor of SSM Cardinal Glennon Children’s Medical Center. It pledged $150,000 to support fundraising initiatives during 2013 after contributing more than $100,000 in 2012.

care they provide to children, even those whose families cannot pay,” Hagan says.

“We support the community through financial wellness, striving to listen to the needs, problems and objectives of our clients, then offering new ideas and solutions to address these. We really do believe that financial wellness and physical wellness go hand-in-hand to improve this region.”

Fifth Third Bank’s contributions to SSM Cardinal Glennon have sustained

was presenting sponsor of the inaugural Glennon Gallop polo match held in August to benefit the Danis Pediatrics primary care service.

This past summer the bank and its employees expanded the “Messages of Hope” project, which invites the community and hospital visitors to write inspiring notes to patients and families. The messages are reviewed,

Fifth Third Bank has pledged $150,000 to support fundraising initiatives during 2013 after contributing more than $100,000 in 2012.

“Both organizations are here to make the community a better place.

Cardinal Glennon does it with physical wellness through the outstanding health 12 • Cardinal Glennon Children’s Foundation

and expanded programs such as the Glennon Ambassadors, Family Winter Carnival, Bob Costas Event, Scoops of Fun and the Glennon Card. Fifth Third

Fifth Third employees lend a hand at the Family Winter Carnival.

Featured above is Jill Ott, a Fifth Third Bank employee, whose diabetic children Gracie and Andy are followed by doctors at SSM Cardinal Glennon.

rolled into decorative scrolls then placed in the Ambassador kiosk just outside the medical center’s main lobby. Patients, family members and the hospital staff members are free to retrieve a message.

At Christmas time the messages are rolled in a keepsake thumb band inscribed with the simple word “Hope” and placed in a chest under the Christmas tree in the atrium.

Fifth Third Bank designed “Messages of Hope” boxes and placed them in its 17 St. Louis branches. The displays hold forms which can be filled with encouraging words for kids and parents back at SSM Cardinal Glennon. The boxes explain: “While kids and parents are in the hospital dealing with injuries, illness or recovery, big hopes are often supplemented with hope for some simple things, like a good night’s rest, a day with less pain or just to know that someone is thinking of them.”

Each box briefly tells the story of a Fifth Third Bank employee who has been touched by the medical center. One of the five employees is Jill Ott, whose diabetic children Gracie and Andy are followed by doctors at SSM Cardinal Glennon. “It is tremendously rewarding knowing my employer supports an

organization that has made such a life changing impact on the well-being of my family,” she says.

“SSM Cardinal Glennon’s commitment to helping children is very important to me personally and very important to our employees.

So many of us have personal experiences with children or friends who have been touched

by Cardinal Glennon,” says Hagan, who has children aged 5, 9 and 12 years.

SSM Cardinal Glennon has become a rallying point for Fifth Third’s employee engagement team, said Dawn Van Houten, vice president and affiliate marketing director for the bank.

“A group of individuals from all around the bank get together once a month to talk about ways we can make a difference in the community,” she says. “We look at Cardinal Glennon’s events and think of ways that we can be involved.”

“Our employees are not concerned with the dollar amount of a sponsorship as much as they are with being involved,” Hagan says. “Last year, close to 40 percent of our work force volunteered nearly 200 hours to Cardinal Glennon and other projects.”

The volunteers attend many SSM

Cardinal Glennon events, Van Houten says, sometimes just to help set things up. “At the Winter Carnival in January we served coffee and helped kids make their buttons and costumes. The employee engagement team came up with the idea for us to adopt ‘Messages of Hope.’ It comes down to, ‘How can we make a difference?’”

The bank created another project for patients, the “ Bubbles of Hope” activity book. Fifth Third commissioned the writing, design and printing of the book,

Along with her colleagues, Dawn Van Houten (center), vice president and affiliate marketing director of Fifth Third Bank make rounds at SSM Cardinal Glennon during the Mardi Gras season.

which is given to children admitted to the hospital.

“We kept hearing that the one thing the kids needed more of was hope,” Van Houten says. “The book was designed with input from the hospital’s child life specialists to take their mind off their worries and explain the hospital experience in a way that is not scary.”

Philanthropic activities benefit Fifth Third Bank as well as SSM Cardinal Glennon, Van Houten says. “Our employees are excited about being part of a bank that wants to make such a big difference. I get excited when I talk about it!”

“Charitable work is engaging and fulfilling for our employees,” says Hagan. “We are all family people.

What better way to help children than to do it through Cardinal Glennon, which is the beacon of hope for children in this community.” glennon.org Fall 2013 • 13

Saving Lives Around the World Guatemalan boy comes to SSM Cardinal Glennon for lifesaving surgery

“Where is the ball?”asked 5-year-old

Angel Caac Cal when he awoke in the surgical recovery room. That is a typical question from a little boy, but Angel was not referring to sporting goods.

What Angel inquired about was the 13-pound tumor removed from his neck by surgeons at SSM Cardinal Glennon Children’s Medical Center. Thanks to the generosity of several St. Louis organizations and their countless contributors, Angel had come to St. Louis from Guatemala to seek treatment for the mass, which was larger than his head.

In

sports terms, “It was bigger than a soccer ball but not quite the size of a basketball,” says John Stith, M.D., an otolaryngologist at SSM Cardinal Glennon. “I have seen this type of mass only a handful of times in my career. I have never seen one this large. It’s amazing that he managed to live with it and thrive in spite of it.”

The swinging weight of the tumor prevented Angel (pronounced AHN-hel) from active play. He slept on his side so the mass would not press on his chest.

He waddled when he walked and had to hold “the ball” so he could maintain his balance. He John Stith, M.D. preferred to be carried by his father.

“I had never seen anything like it,” adds Dary Costa, M.D., another SSM Cardinal Glennon otolaryngologist who was lead surgeon on the case. “If Angel had been born in the United States, the mass would have Dary Costa, M.D. likely been removed when it was still small in size. Usually neck masses in children are recognized when they are less than an inch in diameter.”

The tumor was beginning to harm Angel’s self-image.

“Having a large tumor hanging off the neck is a significant detriment, especially for a child,” Costa says. “Angel was cognizant of it. Age 5 is right when children start to recognize differences in their appearance. The fact that we could make him look normal was important.”

More important was the tumor’s likely impact on Angel’s life span.

“The tumor would have slowly gotten larger and increasingly symptomatic, stretching adjacent structures until it outgrew its blood supply,” Costa says. “Parts of it may have started to die and cause infection that could spread to his bloodstream and end his life. It is difficult to say how long that would have taken.”

Verapaz. Nearly all of Chisec’s 70,000 people are descended from the Mayan civilization that thrived throughout Central America from about 250 B.C. to 950 A.D. Spanish is Guatemala’s official language but Chisec’s common dialect is Q’eqchi, one of 21 Mayan dialects still spoken. It is named for the Q’eqchi people who were part of the Mayan empire and now comprise six percent of the country’s population.

More than half of Guatemala’s population is classified as living in poverty. Mayan regions of Guatemala also have few health care resources due to remoteness and the preferences of some residents for care from traditional, indigenous healers.

The highlands of Guatemala

Angel was brought to St. Louis by the World Pediatric Project, a charity that links pediatric surgical and medical providers with critically-ill children in developing countries that do not have advanced health care resources.

“We first heard about Angel at the end of last year. When we saw that picture, we knew we needed to help that little boy,” says Kate Corbett, senior program director of the World Pediatric Project’s St. Louis branch.

“We have partners in Central America and the Caribbean who refer children to us,” Corbett says. “We also have medical teams that travel to our partner countries and find children whose

Angel playing with his father before surgery.

“Kate contacted me and asked if we might take care of Angel,” Stith says.

“There are parts of the world where the medical care is very poor compared to what we have here. We like to help them.

It is nice to transfer what we have to help other people. It is a call to service.”

• “It is nice to transfer what we have to help other people. It is a call to service.”• surgical needs are too complicated for them to be treated there.”

Guatemala sits just south of Mexico and spans Central America from the Pacific Ocean to the Caribbean Sea. Angel lives in the highland city of Chisec in the department, or state, of Alta

The surgeons volunteered their services. Support also was pledged by SSM Cardinal Glennon, the Cardinal Glennon Children’s Foundation and Saint Louis University School of Medicine. The World Pediatric Project began making travel arrangements.

glennon.org Fall 2013 • 15

Saving Lives Around the World

Guatemalan boy comes to SSM Cardinal Glennon for life-saving surgery

Angel and his father, Jose, landed in St. Louis last January with their pastor, Victoriano Pop Ho, who could translate Q’eqchi into Spanish for an interpreter who spoke English for caregivers. Left behind were Angel’s mother, Ofelia, and three older sisters.

“Angel was born healthy,” says his father, a short, trim and muscular man who farms corn and beans. “When he was about a year and eight months old we noticed he had a small growth coming out of his neck. We saw some doctors to see what they could do. No one would operate on it and it kept growing and growing. A friend working with an oil company connected us to come here.”

didn’t know what the mass was,” Stith says.

Two possibilities were suggested by doctors in Guatemala. First was teratoma, an embryonic tumor containing muscle, hair and even teeth. Second was another congenital growth, a thyroglossal duct cyst arising from the thyroid gland.

Both would have posed difficult surgical challenges.

“We were very skeptical about that diagnosis. We had never seen a thyroglossal duct cyst of this proportion.

When we saw the MRI we knew it wasn’t that,” Stith says.

Imaging conducted at SSM Cardinal Glennon identified a probable benign tumor attached to the sternocleidomastoid muscle. Consisting largely of connective

• It was so heavy it was difficult for him to walk or take part in regular kid activities. • The growing tumor was accompanied by fevers, Jose says. “It was so heavy it was difficult for him to walk or take part in regular kid activities. It also made it hard for him to sleep. It was a lot for him to deal with.”

After Angel arrived at SSM Cardinal Glennon, his doctors tackled the mystery of the tumor’s diagnosis. “We wanted to have as much pre-evaluation done in Guatemala as possible since we really

tissue and blood vessels, it offered better potential for a good outcome. Later histopathologic examination of the specimen reported a mesenchymal tumor.

However, Angel’s mesenchymal tumor was very, very large.

“The surgery took about six hours,” says Costa, an assistant professor of pediatric otolaryngology at Saint Louis University School of Medicine. “It was very extensive. It required myself and Dr. Stith and several resident team members. We needed several sets of hands to help hold the mass in position while we were carefully separating it from the normal structures. It was attached to the large draining vein of the neck, the jugular vein, and also to the soft tissue over the larynx, the thyroid gland and the hyoid gland.

Angel prepares to go through the CT scanner.

16 • Cardinal Glennon Children’s Foundation

Dr. John Stith examines Angel after surgery.

“We made an incision and slowly separated it from the normal structures of the neck. There were several large blood vessels going into the tumor that we had to carefully navigate to avoid the loss of too much blood. Then we had to carefully close the skin, because the skin had been stretched by the tumor’s growth. A fair amount of the skin had to be removed.”

“The surgery was fairly uncomplicated because it was not a teratoma. From my perspective the uniquely difficult feat in the procedure was manually holding up the tumor to avoid contaminating the surgical incision, while the neck was being prepped with antiseptic solution, and manipulating it during the course of the resection,” says Stith, an associate professor of otolaryngology at Saint Louis University School of Medicine.

Angel’s case provided an unusual training opportunity for the medical center’s staff and students, he adds.

“These can be terrible problems that maybe we wouldn’t otherwise see in the United States. Taking care of them is an interesting experience and good for our professional development.”

A fiesta for Angel

The heart-breaking little boy who entered the operating room emerged as a handsome young man. Tears rolled down Jose’s face when he was admitted to Angel’s recovery room.

Angel with his parents and sisters.

“He looked great,” Jose says through the Q’eqchi and Spanish interpreters.

“He had a little bit of difficulty post-op due to pain, but since then he has been a lot happier because he doesn’t have that extra weight on him. He is able to have more fun and be a happier kid.

“The surgeon gave us the good news that we shouldn’t have any more issues with the tumor. Nothing should grow back. The only thing that is going to linger will be the scar from the surgery, but that is not an issue for us.”

“By the end of his hospital stay he was walking and maintaining his balance much better. He was playing and seeming to feel better,” Costa says. “To be able to do one short procedure that made his life so much better — this is what keeps me going every day.”

Heading home

Three weeks after Angel, Jose and Victoriano arrived in St. Louis, they headed home. Jose carried a book of photographs.

“We want to remind him of his trip to the U.S. and what he came for and how St. Louis changed his life,” Jose says.

“Before we came to St. Louis he played a little bit with his toys but tired easily. I have noticed that he has started playing a lot more with his little cars and teddy bears.

“I would really like to thank everyone who was involved with Angel’s treatment and made it possible for us to come here. We are thankful to the World Pediatric Project for transporting us to and from the hospital. We would like to thank all the volunteers who visited us and the Ronald McDonald House for keeping us and providing food and clothing. We also are very grateful to the Cardinal Glennon team for everything they have done for us.”

and support them while they are in the United States. These two partners enabled a boy like Angel to get back to the business of being a normal kid. He will lead a normal life and have a beautiful future ahead of him.”

“Many blessings”

Angel and his father were excited about returning to their family’s arms.

“My wife was very sad when we left to come to St. Louis,” Jose says. “Now

• “Cardinal Glennon opens its arms to these children so parents like Jose and Ofelia can have their dreams come true.” • A world partnership

“Angel exemplifies the beauty of our partnership with Cardinal Glennon,” says Corbett. “We have the expertise and compassion of Cardinal Glennon’s physicians and hospital.

Cardinal Glennon opens its arms to these children so parents like Jose and Ofelia can have their dreams come true.

“Then we have the expertise of the World Pediatric Project, which knows how to navigate to get these children here Angel’s welcome home fiesta upon his return to Guatemala.

she is looking forward to welcoming us home. She is so happy to know that Angel can now lead a normal life. We are excited to see our family and have them rejoice with us.”

Angel’s village celebrated his return with a fiesta. Jose sent back pictures.

“A lot of people came out,” Stith says. “We could see that Angel looked great and was a very happy child.

Whenever we can help someone in need and see that they are appreciative, it does give us good feelings.”

“In our village, kids start school when they are six years old, so Angel will start kindergarten next year,” Jose says.

“He also is looking forward to learning how to ride a bicycle.

“We appreciate all of you and we wish many blessings to you.” glennon.org Fall 2013 • 17

Ozzie Smith leads cancer patient Ryton Miller into Busch Stadium.

2013

SEASON

Pass it on The 2013 Homers for Health season kicks off with the Game Ball Relay!

GBR13 • HOMERS FOR HEALTH • HOME RUN DERBY

Presented by:

NEW! H4H Game Ball Relay Debuts on Cardinals Home Opener Day

HOME OPENER • APRIL 8

If you were at Busch Stadium for

START the 2013 Cardinals Home Opener,

day April 8 at Rawlings Headquarters near Chesterfield, Mo. Hundreds of people rose early to be a part of the day. KMOX broadcaster and HRH Radio Chairman John Rooney served as master of ceremonies for the celebration, which also included comments from 7-year-old Madison Harbison, a patient at SSM Cardinal Glennon, as well as Robert Parish, president of Rawlings, and Dave Warning, executive vice president of Commercial Banking at BMO Harris Bank.

you witnessed a very special delivery of the official game ball on the jumbotron.

SSM Cardinal Glennon, partnering with BMO Harris Bank, debuted a new event this year — The Game Ball Relay — in conjunction with Homers for Health.

GBR13, as it was affectionately called, involved a 100-person relay team that carried a custom-designed torch on a 26-mile run across St. Louis. The torch, crafted in the style of an Olympic torch and created by the Rawlings Corporation, featured two golden Rawlings baseball gloves perched above two crossed bats.

The official game ball was placed inside the gloves.

Opening ceremony festivities for the relay began at 5 a.m. on Home Opener

our community and beyond,” said Dino Canella, senior vice president of BMO Harris Bank, who was present at the relay.

“Knowing Cardinals fans and the rich baseball history in St. Louis, we are sure this will become one of the biggest opening day celebrations across the major leagues.”

Olympian and World Champion runner Craig Craig Virgin at Cardinal Glennon in Virgin started the relay at 1968 Rawlings. Virgin had bladder reconstruction surgery at Cardinal Glennon in 1968.

Over the course of the next several hours,

“ Knowing Cardinals fans and the rich baseball history in St. Louis, we are sure this will become one of the biggest opening day celebrations across the major leagues.”

“As presenting sponsor of GBR13, BMO Harris is both humbled and grateful to support a mission that heals so many lives and touches so many hearts in

1

the GBR torch exchanged hands and wound its way through the streets of St. Louis, traveling through Forest Park, the St. Louis Zoo and in front

3 4 2

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6

(1) H4H Radio Chairman John Rooney kicks off the festivities. (2) Maryville University’s basketball team takes front row during ceremonies.

(3) Patient Madison Harbison and Robert Parish present the game ball. (4) Chris Hugge, M.D., Craig Virgin and Robert Parish start the Game Ball Relay. (5) Tim Ezell from Fox 2 News (6) St. Louis County Chief Operating Officer, Garry Earls hands off the torch from St. Louis County to the city of St. Louis. glennon.org Fall 2013 • 19

of landmarks such as the St. Louis Art Museum, The Muny Opera House, the St. Louis Science Center and the Cathedral Basilica.

The ball made a brief stop at SSM Cardinal Glennon, where it was greeted by hundreds of patients, families and staff as hospital President Sherlyn Hailstone carried the ball through the medical center. The ball “visited” patients in their rooms and was even taken to the playground that Cardinals fans helped build through their purchase of Rally Squirrel charity apparel in 2011.

From there, the runners and walkers proceeded to follow the ball 2.6 miles to a home opener party at Union Station,

HOME OPENER • APRIL 8

where they officially celebrated the kickoff of the second year of the Homers for Health fundraising program. The

Hope Seymour, who was celebrating her 4th birthday that day! Hope underwent two lifesaving heart surgeries at SSM Cardinal Glennon. She was joined on her walk by her sister Madison, and her parents, Matt and Brooke Seymour, who also serve as Glennon Ambassadors.

“ To be a part of this celebration is exhilarating and uplifting for all of the kids and families...” party, hosted by Fox 2/KPLR 11 and Emmis Communications, was a hit and included an opportunity for fans to talk with former Cardinals pitcher and Cardinals Kids TV host Andy Benes as he signed autographs.

The torch carrying the opening game ball left Union Station in the hands of

“To be a part of this celebration is exhilarating and uplifting for all of the kids and families who have come to know and love Cardinal Glennon so well,” said Brooke Seymour. “We are so grateful to Hope’s caregivers for everything they have done for our daughter and we would not miss this day for anything.

9 8

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(7) Patient Camryn Akerson celebrates with Katie Werner of BMO Harris Bank. (8) Maggie Bohannon leads team Peabody through Forest Park.

(9) Dr. Aki Puryear charging through Midtown St. Louis. (10) The torch passing the Cathedral Basilica. (11) Rosati Kain students cheer on the ball.

(12) Dr. John Peter heads down Lindell Blvd.

20 • Cardinal Glennon Children’s Foundation

Goosebump Moments along the relay route:

We consider ourselves to be part of the Cardinal Glennon family.” Together they delivered the torch to 7-year-old cancer survivor Ryton Miller and former Cardinals shortstop Ozzie Smith, who were both waiting to make the final leg of the relay into Busch Stadium.

From there, GBR13 went down in history as Ryton and Ozzie Smith officially presented the game ball to the home plate umpire.

Stay tuned — Big things are in store for GBR14!

• Watching 17-year-old cancer survivor Joey Renick and 13-yearold Maggie Bohannon run through the streets like the champions they are.

• Seeing the entire student body at Rosati Kain High School stand in front of their school as the GBR torch went by, serenading everyone with a special rendition of “Take Me Out to the Ballgame.”

• Patient Camryn Akerson’s face lighting up as she giggled, running through Forest Park.

• Watching our own Dr. Aki Puryear as he ran past the Cathedral Basilica and Dr. John Peter as he took the stretch through Midtown before the stop at the medical center.

GBR13

• Seeing the smiles of hospital staff and families as the ball ran through the scanner in the new Imaging Center, which was partially funded with donations to Homers for Health in 2012.

• Hearing the cheers of everyone along the relay route and at our celebration party!

FINISH

Watch the video

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(13) The ball makes a run through the CT scanner. (14) Cardinal fans catching rally beads at the H4H pep rally. (15) Dan Buck and Andy Benes celebrating Cardinals Kids TV. (16) Fans get their pictures taken with the H4H co-chair cutouts. (17) Heart patient Hope Seymour passing the torch to Ozzie Smith and cancer patient Ryton Miller. (18) Ozzie Smith and Ryton Miller present the game ball of the home plate umpire. glennon.org Fall 2013 • 21

Homers for Health Pledge Map Homers for Health Pledge Map

Scotland

China

POWERED BY:

2013 Homers for Health A hit in year two!

The St. Louis Cardinals have had a fantastic season this year and that means another successful year for Homers for Health (H4H), our home run pledge program that continues to grow by leaps and bounds.

As many of you know, Cardinals fans can pledge to make a donation to SSM Cardinal Glennon Children’s Medical Center for every home run hit by the St. Louis Cardinals during the regular season. H4H, led by Cardinals sluggers Matt Holliday and David Freese, added an H4H rookie this year, first baseman Allen Craig. Thanks to their

Australia

blindfolded, behind the back, and even in rounding up pledge forms from the rest of his teammates in public service announcements for this year’s Homers for Health, which aired on FM NewsTalk 97.1, KHITS 96.3, K-SHE-95, Fox Sports Midwest, KTVI-Fox 2 and KPLR-11.

Overseas, the Wieclaw family continued their international support of the Cardinals and Homers for Health.

Last year, they sent a pledge in from their home in Poland. This year, they moved to Scotland, but didn’t forget St. Louis.

Witek, Maciek and Wojtek Wieclaw in Scotland.

Allen Craig earns his stripes by getting pledges.

efforts and the reach of KMOX Cardinals broadcaster and H4H Radio Chairman John Rooney, our second year of the program has been truly amazing. We have received pledge donations from Cardinals fans in 36 states as well as from Australia, China and Scotland!

Challenged by his H4H teammates, Craig earned his stripes by hitting

POWERED BY:

Maciek, Witek and Wojtek Wieclaw sent in their 2013 pledge from Scotland and are proudly wearing their H4H gear in the land of the bagpipes!

St. Louis fans could make pledges at Dierberg’s and Johnny Mac’s Sporting Goods stores. Seniors also got into the

Johnny Rabbit leads seniors in baseball bingo.

act in a big way this year. Our friends at Garden View Care Centers held a special baseball bingo party, led by KMOX broadcaster Johnny Rabbit. What a great way to bring the Cardinals spirit and win fabulous prizes while playing bingo amongst friends!

New this year was the “Stan the Man” Musial pledge, with donors pledging $6 or more per home run to SSM Cardinal Glennon. We had 169 people make this pledge, whose names are engraved on a 7-foot commemorative display at the medical center, courtesy of Garden View Care Centers. See Glennon Friends for a list of donors.

Last year’s donations to Homers for Health went toward funding the new Imaging Center at SSM Cardinal Glennon.

“The thousands of baseball fans who participated in Homers for Health 2012 should be proud to know they helped build the new Imaging Center,” said H4H co-chair Matt Holliday.

“Every pledge adds up, makes a difference and has an impact for the kids.”

Be a part of our winning team! Visit glennon.org to check out the final total dollars raised through this year’s Homers for Health and to learn more about participating next year.

H4H Schools Raise $20,000+ There’s nothing we like to see more than kids helping kids. This year, for the second year in a row, Homers for Health activities brought together kids raising funds for the children at SSM Cardinal Glennon.

Children across area schools raised money through dress-down days, raffles and holding wiffle ball home run derby’s at their schools—raising $20,592 for Homers for Health.

One-thousand friends and family members came to support the two hundred kids who participated in the Home Run Derby Championships at Forest Park hosted by H4H co-chairs Matt Holliday, David Freese and Allen Craig.

2013 Home Run Derby Winners

TOP FIVE HOMERS FOR HEALTH FUNDRAISING SCHOOLS • Holy Infant: $2,033 •S acred Heart – Troy: $1,960

Home Run Derby

•S t. Angela Merici: $1,771 • Immaculate Conception – Dardenne Prairie: $1,525 •S t. Joseph School – Cottleville: $1,002

Watch the video

If your school would like to sign up for 2014 Homers for Health activities, contact Aaron Emig, manager of community philanthropy, at 314-678-6636 or at aaron_emig@ssmhc.com.

ROOKIES, GRADES K-2

NATIONAL, GRADES 3-5

AMERICAN, GRADES 6-9

Thomas Helmsing – Kindergarten at St. Gerard Majella

Emma Nicholson – Fifth grade at St. Ambrose Catholic Grade School

Mollie Stanek – Sixth grade at St. Alphonsus Millwood

Mia LaMartina – Second grade at St. Mary Magdalen

Ryan Richterkessing – Third grade at Immaculate Conception-Old Monroe

Cory Free – Eighth grade at Sts. Joachim & Ann School

Thank You

Friend for being a

Her smile is infectious. Her conversations bubble with laughter and excitement. If you talk to Mary Hilton for a while, you will see that she is both a normal 13-year-old and a very special little girl.

M

ary Hilton is a dear friend of SSM Cardinal Glennon Children’s Medical Center. Over the past five years, she has turned a small idea — Gift Tags for A Cause — into a large-scale fundraiser that has resulted in thousands of dollars donated to the hospital.

“It’s snowballing and getting bigger each year,” Mary says. “I never thought it would grow this big!”

What’s grown has been a circle of friends and family called Mary & Friends, all dedicated to making handmade gift tags that are then sold, with proceeds donated to the hospital. She started the gift tag sales when she was just eight years old.

“Around Christmas, I sat in my bedroom and made little gift tags, which I sold to my family,” Mary explains. “I made $73 that year and donated it to a local hospital. The next year, my sister Ana and I did it again and made $500. I donated that to Cardinal Glennon.”

She chose SSM Cardinal Glennon because it was here where her family says she regained the gift of speech. “One day she was saying ‘da-da.’ The next day she couldn’t say anything except grunts,” says Mary’s mother, Amy. Mary was diagnosed with apraxia of speech, a complex disorder that impacts the ability of a person to speak, when she was just 18 months old.

24 • Cardinal Glennon Children’s Foundation

“Speech apraxia is not very Mary & Friends now includes groups of common,” says Beth Mee, MS, kids at several different schools in the CCC-SLP, a speech language region. Together they make thousands of pathologist at SSM Cardinal gift tags each year.

Glennon for 23 years.

Last year, Mary & “When Mary Friends raised $5,200 for came here, SSM Cardinal Glennon. all she could The donations keep s i gs a t say was rising as Mary gets the t gif kids g t a n i h ‘bow’ and word out to other t k “Ma easy ortant g n i she used kids. “I told friends, h t some ! It is imp olved that sound all my friends told other o v Mary presents her first check to her speech can d ids get in y and the time. Her friends and it just language pathologist, Beth Mee, in 2009. t i k n t u m apraxia was keeps growing as s tha m d i o k c e get every school in the region to ir quite severe.” more kids want to in the that som te as participate. Maybe we can grow this a e The first help us,” realiz t as fortun l this across the country.” thing “Miss says Mary. re no . Our goa If you are interested in creating a a Beth” did was Her mom y are e Tag Team, donating supplies or funds or h t to extend and dad say e c n s i want to know more about Mary & Friends a h r Mary’s speech Mary wants yea sac a ” h ! email gifttagsforacause@gmail.com or e e c n ability. From bow, more people to veryo a differen E visit Mary & Friends Gift Tags for a Cause she moved to join the “Tag ke on Facebook. to ma “Boo!” playing hide Teams.” In Thanks, Mary, for being such a and seek games with the coming great friend to SSM Cardinal Glennon the toddler. Then year, Mary Children’s Medical Center! ‘bay’ was molded and wants to expanded into ‘bayexpand the be” using stickers of number of schools babies and baby dolls as involved and the places where reinforcement. “You have to tags are sold. She recently extended her make the activities fun, motivating product line to include occasion gift tags and engaging, especially for young in addition to her standard Christmas children,” Mee explains. “The whole and holiday tags. Thanks to an idea from family was involved in helping Mary Beth Mee, the family also will soon offer at home, too.”

Gift Tags for A Cause Project Packs, with Mary met with Miss Beth twice all the supplies inside a Gift Tags for a week for five years, at times in the bag that can be sent to a Cause Hilton’s home to better accommodate interested groups who Mary’s school schedule. “Mary has done want to help make exceedingly well in therapy because she or sell gift tags for is smart and incredibly determined,” says Mary & Friends.

Mee. “I’m not surprised she did well For her many kid because she really is an amazing child.” helpers, and the parents The successful result of the speech involved, Mary & Friends therapy can be seen in Mary’s growing created T-shirts that list of school activities. In grade school, reflect Mary’s philosophy Mary earned blue ribbons while being for her heart-felt mission. a member of her school’s speech team.

On each shirt sold, it Now a teenager and in eighth grade, says, “The smallest voice she’s active in Visitation Academy’s can make the biggest Student Council. difference.”

She also continues to make and sell “We’ve started a gift tags. More than simply fundraising, movement,” Mary says Mary is focused on “friend-raising.” happily. “I hope we can Mary & Friends gather to present their 2012 check to

!

0 0 5 , $10

Mary & Frien

ds

SSM Cardinal Glennon.

glennon.org Fall 2013 • 25

Keep track of your carbs.

Dose for it.

Go for it.

Diabetes and sports stick together at SSM Cardinal Glennon Diabetes Center “Ian is a pretty good athlete,” says Ken Campbell, the head boys track coach at Northwest High School in Jefferson County, Mo. “I talked to Ian about his diabetes before the season started and he told me there probably wasn’t anything I would need to do.

I tried to keep an eye on things and watch for warning signs, but there weren’t any.”

Ian Konecnik, 15, is a sophomore at Northwest this fall. He was diagnosed three years ago but that has not slowed his energetic pace of life. The Diabetes

26 • Cardinal Glennon Children’s Foundation

Center at SSM Cardinal Glennon Children’s Medical Center taught Ian and his family a strict protocol for controlling his disease and he has run with it – literally.

“I do the hurdles, the long jump, the triple jump and some of the relays,” Ian said. “Diabetes doesn’t affect me much. Every once in a while I have to eat something. That’s about it.” The diabetes doctors, nurses and nutritionists at SSM Cardinal Glennon not only counsel patients to remain active – they encourage it.

e

T

“

he standard of care today is very intensive. It is a lot of work,” says Mark Eddy, M.D., Ian’s endocrinologist at SSM Cardinal Glennon.

“The upside is, it provides really good glycemic control.

Participating in some physical activity today is important.

Patients who play sports Ian stretching with Rob Maxwell, assistant varsity coach at Northwest High School. consistently seem to be motivated to take care of their diabetes and have a certain amount of Type 2 diabetes is a metabolic structure built into their lives.” disorder that prevents the body from There are two types of diabetes effectively using its insulin. It usually is that prevent the body from regulating diagnosed in adults but, JDRF points out, levels of blood glucose (or sugar). Children “increased obesity has led to a recent rise and teens tend to be affected by Type 1, in cases of Type 2 diabetes in children an autoimmune disease that causes the and young adults.” pancreas to stop producing insulin, If patients strictly adhere to their a hormone that enables the body to treatment plan, “they don’t let it stand convert food to energy. Type 1 patients in the way of achieving their goals,” the must closely measure food consumption Foundation per SSM Health Care style – measured in carbohydrate counts — guide says. and match it with multiple daily injections If not properly treated, diabetes can of insulin. Many patients, including Ian, lead to complications including kidney wear an insulin pump that continually failure, blindness, nerve damage, heart infuses insulin. attacks and strokes. “Years ago it was Nearly 26 million Americans have well demonstrated that there are means diabetes, according to the Juvenile of achieving good overall control of Diabetes Research Foundation (JDRF), diabetes,” Eddy says. “There is hope that and about 3 million may have Type 1. this good control will delay the onset of “The incidence of diabetes in the complications.” general population is about 1 percent,” During the summer of 2010, Ian Eddy says. “The youngest patient I have seemed to have a very bad intestinal seen was six weeks old. Most people ailment, says his father, Alan. At 2 a.m. diagnosed as Type 1 are picked up from his parents took him to the pediatric 6 to 16 years of age. Some individuals are emergency department operated by diagnosed into their late 20s or early 30s.”

Cardinal Glennon at St. Anthony’s Medical

Center in south St. Louis County.

“We thought he had the flu,” Alan said. “As I was carrying him into the emergency room, the doctor saw him and said he knew what the problem was. After about an hour and a half they got him stabilized and put him in an ambulance to take him to Cardinal Glennon.”

The Konecniks spent five days at SSM Cardinal Glennon and received a crash course in diabetes management. They were amazed at the flexibility Ian was given to regulate his diet and insulin.

“They went over things backwards and forwards. They taught him to read labels and really think,” says his mother, Christina.

“They make it as painless as it can be,” agrees Alan. “It helps that Ian is pretty good at math. The Cardinal Glennon view is, ‘Keep track of your carbs. Dose for it. Go for it.’”

“I look at the labels for the carb counts. In the insulin pump there are ratios of so-many units per carb, so you take your blood sugar, put in that and the carb count and you get the dose for the meal,” Ian says.

“Ian is a responsible, intelligent young man who is pretty self-sufficient,” Coach Campbell says. “For the most part, he is just a normal athlete.”

Northwest is a large school with up to 2,500 students, so athletes with medical issues are not rare, he says.

“Kids having to take inhalers for asthma is normal. Northwest is tremendous when it comes to kids who have a

diet exercise

educate

Nearly 26 million Americans have diabetes, according to the Juvenile Diabetes Research Foundation. glennon.org Fall 2013 • 27

Keep track of your carbs. Dose for it.

Go for it.

Ian wakeboards with family at Table Rock Lake.

disability or illness. They go out of their way to make sure everybody has a chance to participate.”

Ian went through three stages of awareness after his diagnosis.

“At first I didn’t know what diabetes was. I thought they would do something to treat it and I would go on normally,” he says. “When I found out I would be taking shots forever, I thought it would affect my participating in sports. Once I got everything under control, it was second nature and I knew I could do what I wanted.”

The Konecniks are “a good example of a patient and family working well together to do an excellent job of taking care of diabetes,” Eddy says.

Young people who do not control their diabetes can remain active but they raise their risks of complications later in life, he says. “The early complications are usually without symptoms. As those

Ian gets his regular check-up with left, Mark Eddy, M.D., and Matt Lunneen, PNP-BC, CDE.

Ian’s pediatric nurse practitioner and certified diabetes educator in the Diabetes Center. “When I was diagnosed with diabetes I was 20 years old. I was a

“a good example of a patient and family working well together to do an excellent job of taking care of diabetes.” progress, there can be damage to vision.

Diabetes is the leading cause of kidney failure in the U.S. As folks get into their 40s, 50s and 60s, the equation becomes more complicated.”

Matt Lunneen, PNP-BC, CDE, is

28 • Cardinal Glennon Children’s Foundation

fairly high-performing tennis player on my team at Truman State University,” he says. “We teach families that diabetes is not a disease that should limit you.

You do have to be careful.

“Diabetes is very manageable if you

are prepared to troubleshoot some very dangerous situations that can occur, and we invest an incredible amount of time in educating our families in how to approach these situations. You must know how and when to treat hypoglycemia, manage hyperglycemia, balance carbohydrate intake before and after exercise and adjust insulin doses accordingly before and after exercise,” he says.

“And the tricky part is that no two people with diabetes are the same.

You must learn your body better than anyone else ever could. And that takes meticulous record-keeping and exceptional maturity, especially in a teenager.”

Camp EDI It’s all fun, games and lifelong lessons at diabetes camp.

G

loria Hirsch Camp EDI in the Ozark forests of Missouri is a highlight of the year for the region’s children with diabetes.

Members of the SSM Cardinal Glennon Diabetes Center staff volunteer their time to help patients have fun and become independent.

Gracie Ott attended her fifth camp last summer. Brother Andrew, diagnosed in March, attended for his first time.

“They love it,” says their mother, Jill. “My daughter would live there year-round if she could. They get so many things out of it.”

“We’re hoping to increase diabetes management skills in children while providing them an opportunity to experience camp in a medically safe environment,” says Cathy Hartmann, director of mission delivery for the American Diabetes Association in St. Louis. “Our capacity is 128 and generally we are close to that.”

Camp EDI, an acronym for exercise, diet and insulin, is held at Blue Mountain Camp in Fredericktown, Mo. It welcomes children who are 9 to 15 years old plus 16- and 17-year-old counselorsin-training for a week. Two four-day mini-sessions are scheduled for boys and girls who are 7 and 8 years old.

Two regular contributors from the SSM Cardinal Glennon Diabetes Center are endocrinologist Susan Myers, M.D., and clinical nurse practitioner Bonnie Wolff, CPNP, CDE.

Above: At Camp EDI, Andrew Ott makes sand castles. Below: Andrew’s sister, Gracie Ott, enjoys kayaking.

“We hear again and again that camp is life-changing,” Hartmann says. “It gives the kids a sense of community. Some of them reach incredible milestones, like giving themselves their first insulin injection. We celebrate those milestones in a really big way and the kids go home feeling more empowered and independent. We couldn’t operate the camp without our endocrinologists and nurses.”

The Ott children, both treated by the Diabetes Center at SSM Cardinal Glennon, have become more diligent about caring for their diabetes since attending Camp EDI. “The camp counselors are typically college kids who are living with diabetes, so they see good, positive role models,” Jill says.

“The camp brings in doctors and podiatrists for wellness classes to talk to the kids about managing their disease. Gracie and Andrew love to tell me the things they learned when they come home.

They talk about things like making good choices when they are eating.”

The camp’s learning experiences are wrapped around plenty of fun.

“They go hiking, they learn how to paddle a kayak, they do crafts,” Jill says.

“They are swimming and playing games and singing campfire songs. When they get home they want to continue doing those things.”

Another major benefit of camp attendance is making friends with other children and teens who are growing up with diabetes, says Jill, who serves on the community board of the American Diabetes Association in St. Louis.

“We hear again and again that camp is life-changing.”

“They realize that there are other kids their age who are living with diabetes.

My daughter has a group of 12- and 13-year-old girls with diabetes who stay connected throughout the year. It has provided a support network of her peers, which is a phenomenal thing for a child to have. Hopefully our son will have that also as he grows.”

Gracie was diagnosed with diabetes in California during a family vacation. She was still in pediatric intensive care when a doctor there encouraged the family to look up the diabetes camp when they returned to Missouri.

“They told us to get our kids involved and send them to camp,” Jill recalls. “They said you can tell the difference between kids who have gone to camp and kids who have not.”

glennon.org Fall 2013 glennon.org Spring 2013 •• 29 33

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A white hot affair sizzles in the heat!

First

GlennonGallop A Success!

The sun was shining, the heat was on and the polo ponies were in top form as 1,200 people gathered in their finest whites to watch the fastest team sport in the world at Blue Heron Polo Club in Defiance, Mo.

32 • Cardinal Glennon Children’s Foundation

Presented by:

T

he inaugural Glennon Gallop, was a huge success, raising $80,000 to support Danis Pediatrics Center at SSM Cardinal Glennon.

Held at the Blue Heron Polo Club, the polo match was presented by Fifth Third Bank and St. Louis Benefit Polo, the charitable organization of the nationally recognized St. Louis Polo Club.

“Cardinal Glennon has done a fabulous job of presenting us with exciting ideas and events to help support our passion of helping sick and injured kids in our community,” says Shawn Hagan, president of Fifth Third Bank in St. Louis. “Bringing a new group of supporters to Cardinal Glennon is exciting, and we are proud to be a part of making that happen with this firstclass event.”

The St. Louis Polo Club has a stellar history. As the second oldest polo club in the United States, it has supported

St. Louis organizations for more than 100 years by hosting several charitable matches each year.

The group connected with Cardinal Glennon Children’s Foundation after Matthew Broom, M.D., a pediatrician in the Danis Pediatric Center, heard that St. Louis Benefit Polo was seeking a new charitable organization to support with a polo event.

Danis Pediatrics provides outpatient primary care services such as wellbaby check-ups and annual physicals to children from birth to age 18. They also provide diagnostic services and offer consultations and second opinions for complex cases referred to them by family practitioners and other community pediatricians. Broom thought it was the perfect event to support his department.

“We can’t thank St. Louis Benefit Polo, Fifth Third Bank and all of our other sponsors enough for coming together to make this event happen for the kids at Cardinal Glennon,” says Dr. Broom. “To see the strength and agility of the ponies and players on that field is a symbol of how strong our kids can be

“To see the strength and agility of the ponies and players on that field is a symbol of how strong our kids can be as they charge on to better health.”

The physicians of Danis Pediatrics at SSM Cardinal Glennon

as they charge on to better health.”

The Blue Heron Polo Club field, owned by William K. Busch, was the premier setting for the Glennon Gallop.

Team Kräftig, named after Busch’s award-winning Kräftig beer,and Team Little Creek, the Orthwein family team, battled it out through six chukkers, or time periods, with Team Little Creek finally emerging victorious.

In addition to the polo match, there were plenty fun activities for adults and children. Delectable mobile cuisine was available at Sauce Magazine’s Food Truck Stomping Grounds. Among the delicious creations available were Baked and Loaded’s Devonshire wrap, featuring slow roasted shredded chicken breasts with provel and Swiss cheeses; Holy Crepes’ Banana Nutella crepes, Sia’s Italian Ice concoctions, with flavors such as Strawberry-Lemon, Cherry, Mango and Blood Orange.

You definitely wanted to be mid-field at halftime as guests took to field for the BMO Private Bank Divot Stomp as the champagne flowed while guests put the field back together, heels and all!

The Kid Zone was a popular place where children gathered to create and then parade around with colored cardboard ponies. VIP guests noshed on goodies from Jack Mac’s Distinctive Tastes, Bittersweet Artesian Truffles and Kakao Chocolate. Fine wines from glennon.org Fall 2013 • 33

l e f t to r i g h t :

Paul von Gontard, Anne Danis, Anthony M. Bommarito Sr., Peter von Gontard Jr. and Anthony Bommarito, Jr.

Proceeds benefit Danis Pediatric Center at:

WINE, DINE AND DIVOTS | A White Hot Affair

Saturday, August 24 GATES OPEN AT 3:00 P.M. | BLUE HERON POLO CLUB

34 • Cardinal Glennon Children’s Foundation

Presented by:

Dan Buck with Tricia and Shawn Hagan

Enthusiastic bidders raise their paddles during the oral auction.

“Glennon Gallop was a complete success, raising

$80,000

to help

Glennon GlennonCard Gallop

children at SSM Cardinal Glennon.”

Watch the video Mobile Site

Attendees enjoy fine dining in the big tent.

A. Bommarito Wines flowed throughout the day and the classic sounds of Jazz St. Louis filled the air, creating the perfect atmosphere for the day’s events.

The place to be seen was the Fabick VIP tent for the exciting oral auction, where guests enthusiastically tried to outbid each other for exotic trips and premier cases of wine. An overseas trip to Tuscany to tour local wineries was a highlight of the auction, with a $10,000 winning bid. The Gatesworth donated a home gourmet dinner party prepared by renowned Chef Brian Hardy, only to graciously double the prize after two bidders battled it out to win. Chef Mathew Unger of Mathew’s Kitchen and Tony Bommarito paired up, offering a dinner party for 20 at A. Bommarito Wine warehouse. One lucky raffle winner took home a 24K gold and turquoise

Kids create colored cardboard ponies in the Kid Zone.

BMO Private Bank attendees enjoy the traditional stomping of the divots.

bracelet courtesy of Victor Velyan and Neiman Marcus. Forty-four guests “ponied up” on a last-minute request by emcee Dan Buck to round up $6 per home run “Stan the Man” pledges for Homers for Health. Who could pass up the chance to have their name adorned on “Stan’s Number Six”, which was on full display at the event!

Congrats to Team Little Creek and we thank all of our Glennon Gallop supporters, friends and attendees who made this inaugural event such an amazing success. Your support for this fun event has guaranteed that we will be back with another Glennon Gallop event for an even bigger and better year two!

Giddy Up! glennon.org Fall 2013 • 35

Glennon Sunday

St. Mary Magdalen Catholic Church

A Healing

Spirit

“Jesus walks these halls.” That’s the feeling that the Swabby family has after a scary but wonderful experience occurred when their daughter Carley’s life was forever changed at SSM Cardinal Glennon Children’s Medical Center.

I

felt it, I literally felt it,” says Tracey.

“I was walking the halls outside of my daughter’s hospital room, as I did nightly for the months Carley was there, and I suddenly ran into someone in the middle of the hall — except that when I looked up, no one was there.”

Tracey thought the feeling odd until she went to a hospital prayer group the next night. “The person leading the prayers said to us, ‘You need to remember that Jesus walks these halls, and when you are not with your child, He stands at their bedside.’ I quietly cried because I knew that’s what I had felt, that it was real, and somehow, Carley was going to be okay.”

Carley was born in 1999, the firstborn of Tracey and her husband, Jeff. Although born a month premature, Carley was normal in terms of height, weight and development skills. By spring, however, the Swabbys noticed their 4-monthold was very irritable and had little twitches.

When the twitches became more frequent, Jeff took Carley to her pediatrician for a check-up.

The doctor sent them straight to SSM Cardinal Glennon’s emergency department. By the time Tracey arrived at the hospital, Carley was in the midst of a grand mal seizure, a full seizure involving the entire body.

A battery of tests and imaging scans followed with no firm diagnosis of Carley’s problem. Her blood sugar was dangerously low. For months,

36 • Cardinal Glennon Children’s Foundation

doctors could not get her sugar levels stabilized.

Despite even trying to use a pure sugar IV solution to see if they could increase it, Carley’s small body simply wouldn’t respond.

Doctors tentatively diagnosed Carley with a rare condition called hyperinsulinemia, but tests were never conclusive. Three doctors at SSM Cardinal Glennon tried to figure out the problem.

One of them, endocrinologist David Dempsher, M.D., made it his mission to try and figure out what was wrong.

“Cardinal Glennon and God... work together every day.”

When the family asked for another medical opinion at a different hospital, Tracey was amazed to find that the SSM Cardinal Glennon doctors already had reached out to colleagues near and far. “Dr. Dempsher and the other physicians had sought multiple opinions on their own trying to figure out what was happening to Carley,” she says. “She was the subject of numerous multidisciplinary conferences at the hospital, too.

It was amazing to see how much they were doing to try and make our daughter well.”

It was while Tracey was wandering the halls at SSM Cardinal Glennon in silence that she says she felt the nudge of God. “I had gone to the hospital prayer groups before and there was a lady whose son was in the ICU and he was dying,” Tracey recalls with tears in her eyes.

St. Mary Magdalen Parish Speaker Tracey Swabby

Tracey with family: son Gianino, daughter Carley and husband Jeff, first degree Knights of Columbus.

“I saw her pain. I wrote a poem that turned into a prayer but by the time I gave it to the mom, her child had passed.”

Shortly afterward, Carley had a really bad night. Septic and not responding to treatment, her parents realized they might be in the same situation as the other family. That was the night Tracey walked into no one in the hallway outside her daughter’s room. “I didn’t walk into the wall or a door,” she stresses. “The feeling in my right shoulder told me I wasn’t crazy. I went to the prayer group the next evening and was told that Jesus walks these halls. What an amazing feeling!”

The family also was told that a priest from their parish, St. Mary Magdalen in Brentwood, Mo., stopped by after a brief call requesting prayers for Carley. Two days later, Carley’s blood sugar levels started to level out.

Carley was in the hospital from late spring into fall that first year. “We believe that the care and dedication of the staff and the hundreds of prayer cards and well wishes from strangers and friends are what

delivered our amazing and miraculous results,” says Tracey.

Carley is now a happy and healthy 14-year-old freshman at Ursuline Academy. Her parents have never forgotten the experiences — and the people they met — while at SSM Cardinal Glennon. Both now serve as Glennon Ambassadors, helping other families whose children are admitted to the hospital.

Tracey also is a member of the hospital’s Development Board.

Two years ago, Jeff Swabby joined the Knights of Columbus, along with other fathers in their church parish.

“I see it as an opportunity to help not only our community, but also Cardinal Glennon,” he says.

This year, Tracey stood before her fellow church members and spoke about her experiences during the Archdiocese’s annual Glennon Sunday appeal. She was one of several Glennon volunteers who spoke at area Catholic churches. At St. Mary Magdalen, Tracey’s testimony moved many to tears and prompted dozens to donate to SSM Cardinal Glennon. An anonymous donor generously wrote a check for $5,000 after the church service.

Says Tracey, “We have always looked for ways to give back to this wonderful place that kept our family footprint intact and has always been there when we have needed them.

“Cardinal Glennon and God,” she adds passionately. “They work together every day.”

Carley Swabby at 4 months old in Transitional Care Unit at SSM Cardinal Glennon.

Glennon Sunday

2013

“I want to sincerely thank all the pastors, priests, deacons, volunteers and the many grateful families who made this year’s Glennon Sunday collection a tremendous success, raising in excess

$443,488

of to date. We expect that number to grow as we continue to receive parish collections.”

Archbishop Robert Carlson– Chairman, Board of Governors glennon.org Fall 2013 • 37

GLENNON AMBASSADORS

2013 AMBASSADOR

CHOICE AWARDS

Mission in Motion G R A T E F U L FA M I L I E S R E C O G N I Z E E X C E P T I O N A L C A R E G I V E R S “Gratitude is like a muscle. The more you use it, the stronger it gets,” says Laura Wulf, coordinator of Glennon Ambassadors as the second annual Ambassador Choice Awards were presented by SSM Cardinal Glennon Children’s Medical Center.

“The Ambassador Choice Awards give priority to one of our initiatives -- recognizing and celebrating the work that is performed at our world-class pediatric medical center. The awards publicly celebrate ALL of our incredible caregivers who profoundly impact the lives of children and families. Our goal is to highlight ‘mission in motion’ and recognize the importance of that impact on families, each and every day, at Cardinal Glennon,” she says.

The Glennon Ambassadors ask families who have been served by the medical center to submit stories about health care professionals or health care teams who changed their lives.

The Glennon Ambassadors select “Ambassador Choice” honorees that represent exceptional care.

On Glennon Sunday, June 3, 2013, the Glennon Ambassadors and Cardinal Glennon Children’s Foundation staff hosted the 2013 Ambassador Choice

Awards at the St. Louis Zoo’s Living World. More than 260 individuals – staff and grateful families — attended to celebrate exceptional care and honor special caregivers.

“We are connecting at a very deep level with dozens of caregivers and their families each and every year at the ACA reception, program and dinner,” says Dan Buck, executive director of Cardinal Glennon Children’s Foundation. “It lets them know that we truly appreciate their profession and amazing commitment to exceptional care for children.”

Members of the SSM Cardinal Glennon staff received Ambassador Choice Awards in the following categories:

A R E Y O U A G R A T E F U L FA M I L Y M E M B E R ?

If you are a grateful family member who has supported Cardinal Glennon Children’s Foundation through fundraising events, donations or tributes, we thank you for your generosity. If you are new to the SSM Cardinal Glennon family or looking for additional ways to express your gratitude with your time and talent, we invite you to consider Glennon Ambassadors. For more information, visit glennonambassadors.org or contact Laura Wulf at 314-678-6635 or Laura_Wulf@ssmhc.com.

Exceptional Lifetime Achievement Saadeh Al-Jureidini, M.D. “Visiting Dr. J was never a doctor visit that concerned me. He was funny, kind and just spent time listening to my heart and telling me I was amazing.” – Tyler Jackson Affectionately known as “Dr. J,” Dr. Al-Jureidini is director of cardiac catheterization and interventional programs at SSM Cardinal Glennon Children’s Medical Center and a professor of pediatrics at Saint Louis University School of Medicine. He came to SSM Cardinal Glennon in June 1984. Last June marked the 20th anniversary of the cardiac catheterization lab in which Dr. Jureidini played a founding role. The lab has given thousands of children the crucial diagnostic care they have needed for the treatment of heart ailments.

EXCEPTIONAL SERVICE Carolyn Guidry, M.A., CCLS

“Carolyn nominated my daughter and a few other Cardinal Glennon patients for a special recognition. This special night took place about an hour away from St. Louis.

Carolyn made the drive just to see the kids get their special rewards and have a wonderful night. It meant the world for my daughter to see her there!” – Missy Sweeney

Carolyn has been a certified child life specialist at SSM Cardinal Glennon for five years. Carolyn alleviates the anxieties of patients and families and facilitates healthy coping by providing appropriate information and support.

Lisa Lubsch, Pharm.D, AE-C “My daughter recently needed a special medication that was difficult to obtain.

Lisa went to bat for us and went through MANY steps to help get the medicine needed to save our daughter’s life.”

– Missy Sweeney

Dr. Lisa Lubsch has been a pharmacist at SSM Cardinal Glennon for seven years, mostly serving the pulmonary and general medicine services. She educates residents, students, pharmacists and patients on medication use and advises health professionals on drug prescription decisions so they can expect the best possible outcomes.

Exceptional Team Adolescent Medicine (Dianne Elfenbein, M.D., Marianne Dunstan-Brady, M.D., Meghan Guerra, M.D., Nancy Lawson, R.D., and the 3 South Nursing Team) “The Cardinal Glennon Adolescent Medicine team saved my daughter, Maggie.” – Lisa Kollar

Teenagers and young adults often require specialized medical care and doctors with whom they can discuss anything that concerns them. Their parents also need special guidance and support.

Practitioners are committed to helping teens develop healthy lifestyles and habits through guidance and education. Dr. Dianne Elfenbein, director of adolescent medicine, is joined by Dr. Marianne Dunstan-Brady, Dr. Megan Guerra, the nurses of the adolescent unit and other medical professionals in managing issues related to puberty, growth and development, psychosocial development, menstrual issues, sexually transmitted diseases, eating disorders and diagnostic dilemmas.

NOMINATE YOUR SPECIAL CAREGIVER FOR OUR 2014 AMBASSADOR CHOICE AWARDS •N ominations are due by March 1, 2014 to be considered for the 2014 awards. Honorees will be recognized at a dinner reception on Sunday, June 1.

• N omination forms are located in the Glennon Ambassador kiosk at the medical center and online at glennonambassadors.org.

glennon.org Fall 2013 • 39

Exceptional Nursing Care Debbie Bentley, R.N., B.S.N

“Our daughter’s port is a difficult one to access.

Debbie is often the only one that can do it. At one of our infusions, Debbie was off work, leaving on vacation. She knew we were coming in and called to see how the access went. After hearing that it couldn’t be done, Debbie came to the hospital on her way out of town, just to access her port, which was successful!” – Missy Sweeney

The Ambassador Choice Awards ceremony marked Debbie Bentley’s 33rd anniversary at SSM Cardinal Glennon. She has worked on four North, the operating room, the pediatric intensive care unit and ambulatory care clinics including renal, arthritis and plastic surgery. Currently she works in several infusion clinics for patients with Crohn’s disease, ulcerative colitis and immune deficiencies.

Barb Kountzman, R.N. “Barb has been with us for our entire journey with our son. We met her our first long day in the Fetal Care Institute; she visited with us in the NICU and PICU every day and has been our biggest cheerleader.” – Tres Poe

Barb, clinical nurse for cardiothoracic surgery, has been a nurse at SSM Cardinal Glennon for 31 years. She first worked in the pediatric intensive care unit and was instrumental in forming what has been a very active pediatric extracorporeal membrane oxygenation (ECMO) program.

Bobby Parker, R.N., B.S.N

Dawn Sleeper R.N.C

“Bobby is genuine in his heart, respectful in his mannerism, excellent in his profession, amazing in his ability to endure this calling, and trustworthy in the care he gives his Cardinal Glennon families and coworkers.” – Shawn Miller-Krausz

Bobby has been a nurse at SSM Cardinal Glennon for 11 years, caring for hematology/ oncology inpatients and outpatients. Currently he serves as the patient and family educator and discharge coordinator, assisting newly diagnosed patients and families in learning about their treatment plan, easing their transitions to home and managing their inpatient and outpatient care.

“For 10 years there has been one constant in the life of my daughter, one person who continues to stand by her; That woman is Dawn. She is the rock that Mackenzie leans on, the voice of reason when there is too much information and the arms that open to hold both of us when we are having a particularly bad day.” – Shana Woelbling

Dawn, a nurse at SSM Cardinal Glennon for 21 years, worked in the pediatric intensive care and dialysis units before joining the Costas Center staff several years ago to care for kids with cancer and blood disorders. She has accompanied many patients as they have grown and has supported many families through difficult journeys.

Exceptional Team Michael Bunis, Psy.D.

“Michael’s medical and developmental ‘puzzle’ has been incomplete since he was a toddler, bouncing around from specialists, therapists and various educational plans.

At our very first visit, Dr. Bunis listened to me give Michael’s in-depth challenges of growing up with developmental delays, social struggles, educational concerns and many other things. He continues to listen, not only to me, but to Michael too.” – Amy Wagner

Dr. Bunis, a psychologist, joined the Knights of Columbus Developmental Center in August 2012. He is part of a comprehensive care team that enhances and supports children with autism and neurodevelopmental disorders.

40 • Cardinal Glennon Children’s Foundation

Dary J. Costa, M.D.

“With no notice, his entire weekend was dedicated to Henry and he could not have been more gracious about it. He sat through MRI and CT scans with us and provided a sense of calm to two very concerned parents.

Every single time we’re with him, it feels like Henry is the most important patient in the world to him.” – Jackie Parsons

Dr. Costa is an otolaryngologist at SSM Cardinal Glennon Children’s Medical Center and assistant professor of pediatric otolaryngology at Saint Louis University School of Medicine. His research and clinical interests include pediatric sinusitis, hearing loss and airway reconstruction.

Robert Fleming, M.D.

“Dr. Fleming spoke softly to both Simon and myself. He picked Simon up and started to rock him. He let me cry and told me, ‘I’ll just rock him and see if I can get him to settle down.’ He sat there and rocked Simon for 30 minutes or more until I could calm myself down and take over.

That moment of compassion touched my heart forever.” – Erin Beaty-Keith

Dr. Fleming is a neonatologist at SSM Cardinal Glennon Children’s Medical Center and an associate professor of pediatrics at Saint Louis University School of Medicine.

A heart team with unmatched expertise. A nationally ranked cardiology and heart surgery program. Having the best.

Another way our love for kids just keeps on growing.

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SSM Cardinal Glennon Children’s Medical Center · 1465 S. Grand Blvd. · St. Louis, MO 63104 · 314-577-5600 © 2013 SSM Cardinal Glennon Children’s Medical Center. All rights reserved.

GLENNON KIDS

Anne Marie Fraser wanted an unusual First Communion gift when she was in second grade in Shiloh, Ill. “I asked for a basketball hoop in the front yard,” she laughs. “I surprised my parents, but I really wanted to play.”

for Team Ann Marie!

Her dad first had to lower the hoop so his young daughter could hit a basket.

The entire family then began regular hoops nights in the driveway. By the time Anne Marie entered fifth grade, she was excelling on local teams.

“She played tough and she liked to work on skills such as dribbling and shooting,” says her father Jim, who became her team’s coach from fifth through eigth grades. “She always gave her best effort.”

When she entered O’Fallon Township High School, she earned a spot on the girls’ basketball team. “She’s extremely talented,” says Lisa Mathis, one of two freshmen coaches. “She’s a great guard, shoots well, plays hard and she’s an excellent strong defender.”

In her sophomore year, Anne Marie started having a chronic and growing pain in her back. At SSM Cardinal Glennon Children’s Medical Center, Anne Marie was diagnosed with Ewing’s sarcoma, an uncommon bone cancer that typically shows up in children and adolescents.

Her school, coaches and teammates rapidly rallied around her. As Anne Marie started chemotherapy and then radiation treatments, her school family asked how they could help. A brainstorming session among the Lady Panther coaches led to a great idea: why not hold a basketball fundraiser to show support for Anne Marie and her family?

“Anne Marie has a quiet strength about her. I believe it comes from her great family and strong faith. We wanted her to know how much we care and support her as she tackles this cancer head on,” says Coach Lisa. “It was easy to get everyone involved because she’s such a wonderful person.”

“I love all the people at Cardinal Glennon. It feels cozy, like family.”

“When I heard they wanted to do this, I cried,” admits Susanne, Ann Marie’s mother. “I always knew there were good people everywhere, but when the good is for someone you love who is sick, it’s very moving. We knew many of these people for just over a year and I’m so grateful they made my daughter feel special.”

After talking with Anne Marie’s family, the fundraiser turned into a community-wide event that would raise money for not only the family, but also SSM Cardinal Glennon.

“So many people said they wanted to donate to our family,” says Jim Fraser.

“But we have seen all of the families helped

by Cardinal Glennon and we wanted this event to give back to those who helped care for Anne Marie.” Called “Hoops for Hope,” the event was held in

showed up for this. It was really touching as a parent to see that kind of reaction and support for our daughter.”

More than 1,000 Team Anne Marie T-shirts, bracelets and pins were made and sold in support of “Hoops for Hope.”

Lady Panther parents created gift baskets for a raffle at the games. Even the entire faculty at O’Fallon Township High School participated, with teachers and staff all wearing Team Anne Marie T-shirts at school the day before the fundraiser.

Donations for every basket scored and concession sales contributed to the fundraiser. Local businesses and other schools got involved, too.

“We had competing teams come and donate money to the event,” says Coach Lisa. “The Lebanon High School girls’ basketball team holds a cancer fund-

Katherine, Mary, Anne Marie and Claire Fraser

By the time “Hoops for Hope” tallied its results, it was, in fact, overwhelming.

More than $16,000 was raised for Cardinal Glennon.

Adds Susanne, “We love our doctors and nurses. They make us feel welcomed, comfortable and very important each time we come in.”

Anne Marie agrees. “I love all the people at Cardinal Glennon. It feels cozy, like family.”

Anne Marie wrapped up chemotherapy treatments at Cardinal Glennon in July. Her goal now is to get back to a normal high school routine,

O’Fallon Lady Panther’s Basketball Teams

the high school’s 3,000-seat Panther Dome this past February. Freshman, junior varsity and varsity girls’ basketball teams each dedicated games to Anne Marie.

Team Ann Marie raised more than

$16,000

for SSM Cardinal Glennon.

“When you think about girls versus boys teams, turnout is normally just parents and a few others,” says Jim. “But hundreds

raiser each year. This year, they donated their money to Hoops for Hope.”

“What was so amazing was to see the turnout from the O’Fallon student body and staff,” says Susanne. “They had cheerleaders, the Golden Girls dance team, ROTC, the choir and a large student cheering section.”

“I thought we’d raise a couple hundred dollars or maybe a thousand dollars,” says Anne Marie. “It was really emotional for me to see everyone who came. It was overwhelming.”

going to school and hanging out with friends. Because her bones have weakened as a result of the cancer treatments, she is taking a break from the Lady Panthers, but will be rooting for the team on the sidelines.

“She’s still shooting a few hoops at home while she’s on crutches, but she’s taking it easy,” says Jim Fraser. “Her attitude has been outstanding through all of this.

I don’t think she can play high school basketball anymore, but we’re keeping the glennon.org Fall 2013 • 43

PARTNERS IN PARENTING Vera and Gavin Stremlau practice storm safety.

No Worries Soothing Fears of Disaster

Too often, it seems, the daily news brings reports of natural disaster or violence, stories that can be unsettling to adults.

And very scary for children.

44 • Cardinal Glennon Children’s Foundation 32

O

lder children typically can handle concerns about tornadoes, hurricanes, floods and crimes, but younger ones – about 3 and under — lack the coping skills and perspective to keep worries in realistic proportion, says Kenneth Haller, M.D., a pediatrician at SSM Cardinal Glennon Children’s Medical Center and associate

over again on television. They might think these things are happening again each day rather than realizing this is continued reporting about the same event,” Haller says. “When they hear that other kids have been hurt, they are going to identify with them and be more worried.

A younger child will have less experience and context to

“go into the basement because that’s the safest place in the house.” professor of pediatrics at Saint Louis University School of Medicine. He advises parents to be vigilant of the worries of children and take steps to reassure them.

“With the blanket coverage that disasters receive, children can see the same event over and

place the news in perspective.

Bad news can make them feel out of control or unprotected.

They will be profoundly scared that something could happen to them, that they could be left alone and their parents would not be able to help them.”

A

nearby disaster may prompt more fear in children, he adds. St. Louis-area kids will feel more threatened by a tornado striking Joplin than a hurricane coming ashore in Florida.

As children grow older, they realize that dangerous events are relatively rare, he says. “Still, events that are outside their experience are more scary. If they are experiencing lightning or a bad thunderstorm, that is something they have seen before and they learn to adapt.”

Haller advises parents to shield younger children from news reports.

“There is no point to them knowing about things. If they do hear about something that can be scary, talk about it.

By the age of 5 or 6 – and the early grade-school years – they are going to hear about bad things anyway. They have their Facebook pages and cell phones and will see tweets. They will talk to their friends in school. Fortunately or not, they will be exposed to media and hear about events.”

Even if children do not talk about concerns and fears, parents should occasionally ask what is on their minds.

Older children can be reassured with basic facts – such as the knowledge that natural and man-made disasters rarely occur.

“Be open to whatever questions they have and address the roots of their concerns,” says Haller.

He advises giving less detail when talking with younger children. “Parents need to be very definitive with younger children, even to the point of being somewhat unrealistic. It’s important that they feel they are in a safe, secure place.

Say, ‘I’m going to be here. I’m going to take care of you. I’m going to make sure nothing bad happens.’ That’s what a young child needs – absolute reassurance. And younger children can be better reassured about their safety.”

In some cases, older children might require more reassurance, particularly if a tornado or flood has hit their community

or one nearby. “It depends on their previous experience with losses and how much they have heard adults talk about them.”

In some situations, parents should reveal that a disaster would frighten them, too, Haller says. “This comforts the child and tells them there is nothing wrong because they are a little nervous.”

Whenever possible, the parent should demonstrate steps the family can take to reduce its risk and use events – such as severe weather alerts – to review safety preparedness. “Show that your response to being scared is not to sit there and

a siren, it’s important for you to go there yourself,’” Haller says.

If a major disaster has made the news recently, Haller brings up the subject as part of his anticipatory guidance counseling with parents. He sees patients in the Danis Pediatric Center, which provides outpatient pediatric primary care as well as diagnostic services and second opinions for complex cases referred by community pediatricians and family practitioners.

Natural disasters present opportunities to teach children about helping others.

Parents can model altruistic behaviors, such as making a contribution or helping with a

E F SA Kourtney, Kirenda and Matt Shepard talk with Dr. Haller about feeling safe during a disaster.

get upset, but to do something about it,” he says.

Children who are old enough to be left at home alone should be drilled on the steps that should be taken to seek shelter if they hear the tornado warning siren.

“Say to the child, ‘it scares me a bit too, but what we’ll do is go into the basement because that’s the safest place in the house. If I’m not here and you hear

food or clothing collection. Haller suggests asking children for their own ideas about how they, as kids, might help. Children might come up with ideas such as donating part of their allowance.

“As terrible as a natural disaster is, you can get kids from feeling very scared to a point where they feel they can do something to make things better for other people,” Haller says. glennon.org Fall 2013 • 45

Glennon glennon.org CELEBRATING THE FAITH, COMMITMENT, AND GENEROSITY OF OUR SUPPORTERS.

New Donor Recognition

Thanks

Gifts of $250 and above are listed in Friends. To view the full listing of gifts received by our Glennon Friends visit glennon.org

Thanks to the

Development Board for their continuous support of our events and programs.

President Brian Behrens

President Elect Michael Sluhan

Board Members Matt Carr Robert D. Cissell Jan Donovan Matt Fagin Michael Garner Liz Grana Phillip Lee Stephanie Moll Libby Nolan Cindy OleshakUnderwood Shawn Saale Chad Silker Steve Wynd

The best gifts under the sun for America’s leading Catholic children’s medical center

The Glennon Circle supports our mission to reveal God’s healing presence by providing for the unrestricted needs of SSM Cardinal Glennon Children’s Medical Center. The generous spirit of donors in the region and across the United States allows the Cardinal Glennon Children’s Foundation to build and sustain dozens of critical departments, programs and treatment centers at the medical center.

President’s Circle $10,000+ could fund... »a family room on the Oncology floor that would allow parents a comfortable place to relax and have private conversations with their physicians while their child is undergoing treatment

Members of the Glennon Circle enhance the health care and treatments of those we serve by making annual contributions of $1,000 or more:

Champions $5,000–$9,999 could fund... »e chocardiogram exam tables, which assist in the diagnosis of heart-related conditions

Levels

»a hospital-grade sleeper sofa for parents

President’s Circle . . . . . . . . . . . . $10,000 and above Champion . . . . . . . . . . . . . . . . . . . . . . $5,000-$9,999 Heroes . . . . . . . . . . . . . . . . . . . . . . . . . $2,500-$4,999 Guardians . . . . . . . . . . . . . . . . . . . . . $1,000-$2,4999

Members of the Glennon Circle enjoy the following courtesies: » Invitations to donor appreciation events, lectures and receptions » Special recognition on the donor honor wall located within the medical center » Monthly e-newsletter » Annual report recognition » Glennon Magazine recognition » Glennon Circle lapel pin

President’s Circle members only: »

Exclusive communications from SSM leadership regarding the state of SSM Health Care

Contact us at info@glennon.org or by calling 314-577-5605 or 800-269-0552. Thank you!

46 • Glennon Friends

Every Gift Counts

Heroes $2,500–$4,999 could fund...

who are spending the night with their child in their room

» t hree children to attend diabetes camp or

Camp Braveheart for heart transplant patients

Guardians $1,000–$2,499 could fund...

»b ouncy seats and activity chairs for

children served by multiple programs

» t wo gliders for parents in the NICU

who are bonding with and holding their premature infants during their critical first

weeks of life

» tablets with interactive games and

activities used by Child Life therapists to play with children throughout the hospital

» laptop computers children could use

to keep up with schoolwork and interact with peers when hospitalized for long periods

»

gaming equipment to occupy kids undergoing life-saving infusions in the Bob Costas Cancer Center

»c rafts for children »

to enjoy while hospitalized

a single outpatient chemotherapy infusion treatment to help a child battle cancer

Tribute Stan’s Number Six

T

Bob Costas unveils “Stan’s Number Six” at a special ceremony held on April 22, 2013.

From left: Richard and Kathie Winter, Bob Costas, Janet Musial Schwarze (Stan’s daughter), Brian Schwarze (Stan’s grandson), Dave and Jean Edmonds (Stan’s daughter & son-in-law)

hanks to Garden View Care Center and all who made the Homers for Health Stan the Man pledge in honor of Stan Musial and his many years of work for SSM Cardinal Glennon. The following 185 names are etched on “Stan’s Number Six” permanently displayed at the medical center.

Stan the Man Pledges

Anonymous the 9s Magazine Mr. and Mrs. Robert J. Amsler, Jr. Sarah Asinger Daniel Baumstark Lori Bergman and Mike Shannon Maggie Bohannan Laura Boyce Lisa Boyce Mr. Mack Bradley Tim and Marianne Brady Mr. and Mrs. Stephen F. Brauer JC Breault 2005-2013 James G. and Rose Brennan Tom and Linda Breuer Doug and Jo Brockhaus Bob and Kim Brown The Dan Buck Family Joyce and Mike Bytnar Bob and Peggy Callahan Callahan Grandchildren Gloria Canaley Cardinal Glennon Surgical Services Department Mike and Joan Carpenter Julian and Eileen Carr Castle Contracting, LLC Code Consultants, Inc. ConditionReport.com Carla and Mike Cordell and Family Bob Costas Allen Craig Jacqueline and Timothy Danis Darryl and Terry Davis Derrel and Monica Davis Joe Christian and Jordan Demand RJ DePung and Aubrey DePung Jon Deuchler and Dr.Teresa Andreone Jos. Difani, Sr. - My MVP Mike and Debbie Doyle Drury Hotels Company, LLC Aaron Emig Bob Emig Foundation Mark T. Fedak Rose Fogarty, Lexei and Luke Mann Franklin Mechanical, Inc.

David Freese Jessica Marie Key Jason Nicholas Geppert Jamie Lynn Girouard The Gipson Family Bill and Sherlyn Hailstone The Damon Harbison Family The Heimann Family Ed & Karen Hempstead & Family Terry, Debbie and Jimmy Henderson Josie and Ceci Hendrickson Joseph and Faith Herbers Brad Hill and Camille Emig-Hill Mike and Martha Hogan Matt and Leslee Holliday Family Charles B. Huddleston and Marye Gleva The Janey Family The Johaningmeyer Family The William S. Kallaos Family Foundation Ray and Kate Keefe Bobby and Suzanne Keppel Old Monroe Knights of Columbus James and Wylaine Korbelik John and Sharon Kuenke Stanley L. Lawson, M.D. Jim and Patty Lengermann Bob and Marcia Leonard Mark and Susannah Livingston Dr. Mark Lobstein Family Karen Lynch McBride & Son Homes Raman and Shalini Malhotra Daniel Mangus Steven P. and Samuel P. Manno Mathis Martin and Ashton Martin Bo and Terry Mehan Corky and Nicole Miller Mr. and Mrs. Stephen L. Miller Ms. Jeannie Mollohan Morgenthaler Family Pat and Ellen Murphy Dr. William C. Nash Joan and Joseph Niedbalski Dr. Jerry and Jenny O’Neil The Oefelein Family William R. Orthwein, Jr. Parameter Security

Dave and Jane Peacock Family Ryan, Justin and Chloe Peacock Scott and Linda Pearson Dr. and Mrs. Santiago Plurad Rain Tunnel Express Car Wash Robert and Sheryl Ream Dr. and Mrs. Kenneth G. Reinert Bob and Judy Richter Peggy and Jerry Ritter Zachary Robinson H. Joseph Rohatsch and Family Colleen Rooney John Rooney Rachel Rooney Susan Rooney Dr. Sadiq Farouk Leo J. Saltzman Luke Mastin Schawo Jason Schmidt Hayden Schroeder Dale and Kristie Schulz Carol Hess Shahriary Mrs. Daniel Sheehan, Jr. The Sluhan Family Ken and Kent Stock Mrs. Judy Streif Taubman Prestige Outlets William P. Thompson TivoliToo Inc. Barbara J.Truetken Vee-Jay Cement Contracting Bernice M. Voosen Joe and Denise Waechter Lee Wall Mr. and Mrs. Brian Walsh S.Weilbacher and P. LeClair Austin Weir Geri and Bill Willbrand George Bradford Winter Leigh Ellen Winter Richard and Kathie Winter The Witterschein Family Monsignor Ted L. Wojcicki Mike Worley In Memory of Paul Yost Jim and Deborah Young Dennis and Leann Zerkel Alan Zond and Virginia Thomas Zwick and Gandt Architecture

WINE, DINE AND DIVOTS | A White Hot Affair Stan the Man pledges made at Glennon Gallop Auction 24 Saturday , August

Anonymous G 3:00 . . | B H P C Clifford and Jane Adkins Lee Allen Dr. Connie Anderson Robin Ballenger Brian and Libby Billhartz Ben and Charlie Cohen Dr. and Mrs. Ben Conoyer William Davies Mykale and Jason Elbe Dr. Andrew and Lee Fiore In memory of Dr. Casimir F. Firlit John Fischer Craig and Julie Fix Sandy and David Gantt Steve and Cathy Giacin Steve and Lynn Grigone Mary Heaney Chris and Linda Howard Sophia Huddleston Bryan and Laura Jennings Deborah Lazzeroti Dr. Alexander Lin Terry and Kathy Machisen Mike and Debbie Murphy Ken and Donna Naumann Nick Weiland – Painting Solutions Chuck Pfister David Porter Mark and Elizabeth Rhyne Jonathan Ries Beth Ritter Ben Sansone Susan and Allen Schindler Family Chad and Beth Silker The Spooner Family Mike Stengel Family Joe Vitale Emanuel Vlastos Dan and Julie Wagner Claire Williams Robert and Cathryn Wilmott ATES OPEN AT

PM

LUE

ERON

OLO

LUB

Gifts received from February 1, 2013 to July 31, 2013 • 47

Tribute

John & Tina Niemann Children were the center of the Niemann family. Tina and Jack had 11 of their own and devoted countless volunteer hours to children’s causes and charities. The active, wellknown couple passed away last spring, a few weeks apart The Niemanns married in 1953. John O. Niemann, 82, and known as ‘Jack’, graduated from Christian Brothers College High School before settling at Saint Louis University, where he earned bachelor’s and master’s

University.

As the two raised their family, they found time to better their community through a broad range of activities.

Mr. Niemann’s volunteer work included the St. Louis Archdiocese audit committee, the Equestrian Order of the Holy Sepulchre, the Century Club of the Veiled Prophet Organization, the Urological Research Foundation and the St. Peter and Annunziata parish councils.

Tina and Jack devoted countless volunteer hours to children’s causes and charities. degrees in accounting, plus a law degree. He also served in the U.S. Army and spent his professional career at Ernst & Young and at the law firm of Nangle & Niemann, LLC, where he was partner.

Tina L. Niemann, 80, was the daughter of a physician who practiced medicine on The Hill, Vincent J. LoPiccolo, M.D. Her mother was a community volunteer. Mrs. Niemann graduated from Villa Duchesne and attended Maryville University and Saint Louis

friends Anonymous 1-2-3 Club Abbott Laboratories Employee Giving Campaign Mr. Kirill Abramov Advanced Sight Center, Inc. Mr. Cletus A. Ahrens Mr. and Mrs. Alan W. Akerson Alberici Constructors Mr. Elvis J. Alcala All Saints of North America Allen Roofing and Supply Company, Inc. Mr. Allen D. Allred Ameren American Kidney Fund Anheuser-Busch InBev - Stella Artois Ms. Lea E. Ames Amgen 48 • Glennon Friends

From 1984 to 1986, Mrs. Niemann was a member of the Board of Governors of what was then called Cardinal Glennon Children’s Hospital.

She also served on the boards of Fleur de Lis, Kids in the Middle, Boys Hope Girls Hope, Birthright, Paraquad and the Villa Duchesne Alumnae Board. She was a Lady of the Equestrian Order of the Holy Sepulchre. She drove for “Meals on Wheels” and was named a “Woman of Achievement” by the St. Louis Globe-Democrat

in 1982.

Mrs. Niemann was also one of the St. Louis area’s most successful and best– known real estate agents despite starting that career at the surprising age of 48.

Known for tireless and friendly service, she worked for The Henry Company, which later was absorbed by Prudential Alliance Realtors. The firm says she sold about 2,000 homes worth $700 million during her 32-year career. She regularly appeared on the rolls of the area’s top-selling agents. She vowed that she would not retire — at the time of her death she was negotiating sales contracts

for three homes.

Mr. Niemann died on April 27 and Mrs. Niemann died on June 14 after suffering a heart attack. In addition to their 11 children, the Niemanns had 36 grandchildren and one great-granddaughter.

The family asked that memorial contributions be made in Jack and Tina’s honor.

To date friends, family members and colleagues, who will miss them dearly, have donated

Gifts of Friendship

SSM Cardinal Glennon Children’s Medical Center warmly thanks the following

$19,000 to SSM Cardinal Glennon Children’s Medical Center in their name.

benefactors for their gifts of $250 and above designated for specific programs or for the unrestricted Children’s Fund.

Mr. and Mrs. Robert Amsler, Jr. Anders Minkler and Diehl LLP Mr. and Mrs. Paul Anderson Andrea Rizzo Foundation Dr. Theresa L. Andreone and Mr. Jon T. Deuchler Mr. and Mrs. Robert A. Ansehl Mr. Timothy J. Archibald Armstrong Teasdale LLP Ms. Sarah Asinger AT&T Services, Inc. AT&T United Way Employee Giving Campaign Mr. and Mrs. Bruce H. Aydt Ms. Marilyn Bain Bank of America Bank of America Foundation, Inc. Ms. Margaret F. Barnhart

Ms. Katherine C. Bauer Mr. and Mrs. Greg H. Baumann Reverend Lawrence L. Baumann Mr. Bart Baumstark Mr. and Mrs. Richard E. Baur Ms. Lisa Beals Mr. and Mrs. Charles J. Beck Mr. and Mrs. Gregory R. Beekman Mrs. Ardith M. Bement Mr. Warren J. Bequette Mr. Leo B. Bergeron Mr. and Mrs. James G. Berges Miss Lori Bergman Ms. Virginia L. Berra Mr. and Mrs. Paul D. Biolchini Mr. and Mrs. Stephen W. Birkhead Black Sheep Foundation BMO Private Bank

BNSF Railway Foundaton Bob Emig Foundation The Boeing Company Foundation Mr. and Mrs. Robert Bohannan Mr. and Mrs. Fred A. Borges Mr. and Mrs. Michael Boushka Mr. and Mrs. Gregory H. Boyce Mr. Philip D. Boyer Dr. Timothy T. Brady and Dr. Marianne R. Dunstan-Brady Mr. and Mrs. Michael M. Branson Mr. and Mrs. Stephen F. Brauer Mr. and Mrs. James G. Brennan Mr. and Mrs. Thomas E. Breuer Reverend Don G. Brinkman Mr. and Mrs. W. John Broscious Brown Smith Wallace LLC Mr. Frederic Brown, III

Tribute

Dr. Lewis

J

Eugene Lewis Jr., M.D., a pioneer of pediatric surgery, passed away on July 27 at the age of 96. He was chief of pediatric surgery at SSM Cardinal Glennon Children’s Medical Center from its opening in 1956 through his retirement in 1983.

Dr. Lewis grew up in Mountain Grove, Mo., and graduated first in his class from the University of Missouri before receiving his medical degree from Harvard University.

During World War II he served as a U.S. Army surgeon with the Harvard Surgical Unit and cared for patients during the invasion of Normandy and the battles

Dr. Lewis married Betty Brooks McKee, one of the first women to graduate from Harvard’s School of Architecture.

When Cardinal Glennon Memorial Hospital for Children opened its doors in 1956, Dr. Lewis transferred his practice from St. Mary’s Hospital.

“At that time pediatric surgery was a fledgling specialty and Gene Lewis, along with a handful of other dedicated pediatric surgeons, mostly trained by Robert Gross, became the founding fathers and established the specialty of pediatric surgery with a sound clinical and academic footing. He was truly a pioneer

Dr. Lewis “was a Glennon star and is one of the main reasons why Glennon is here today.” of Market-Garden and the Bulge. He was awarded the Bronze Star, five Battle Stars and a commendation ribbon for creating one of the first surgical intensive care units in the Army Medical Corp. After the war he was assigned to the White House as assistant physician to President Harry S. Truman.

After his military discharge, Dr. Lewis completed his training under Robert E. Gross, M.D., the father of American pediatric surgery, at Harvard’s Peter Bent Brigham Hospital. He then was recruited by C. Rollins Hanlon, M.D., chairman of the surgery department at Saint Louis University School of Medicine. Before leaving Boston to become Missouri’s first pediatric surgeon,

Dr. Richard D. Brown Mr. and Mrs. Robert P. Brown Mr. Joseph E. Brueggemann Ms. Maureen A. Brusati Ms. Tina J. Brusca Bryan Cave LLP Mr. and Mrs. Daniel D. Buck Bunzl USA, Inc. Ms. Connie Burkhardt Bussen Quarries, Inc. Mrs. Edwina W. Bussmann Buzzi Unicem USA Mr. Mark A. Byrd Mr. John F. Byrnes Mr. and Mrs. Michael W. Bytnar Dr. and Mrs. Curt Calcaterra Mr. and Mrs. Anthony J. Caleca Mr. and Mrs. Robert E. Callahan Dr. Joseph E. Cangas Mr. and Mrs. James R. Canova Mr. and Mrs. John R. Capps Mr. Thomas W. Capritta

and made enormous contributions which have benefited many neonates, infants and children in this area,” says Andrew Fiore, M.D., a student of Dr. Lewis and now director of cardiothoracic surgery at SSM Cardinal Glennon and professor of surgery at Saint Louis University.

Dr. Lewis “was a Glennon star and is one of the main reasons why Glennon is here today,” says William Keenan, M.D., former director of neonatology at SSM Cardinal Glennon and professor of pediatrics at Saint Louis University School of Medicine. “He was a war hero, physician to the president, a surgical pioneer. He brought specialized surgery for children to St. Louis. He was a passionate, dedicated

Cardinal Glennon Guild SSM Cardinal Glennon Children’s Medical Center Carmody MacDonald PC Mr. and Mrs. Matthew L. Carr Ms. Bridget Carroll Cars for Cause Car Show Castle Contracting, LLC Centene Charitable Foundation Centene Management Company LLC Children’s Miracle Network Children’s Tumor Foundation The Chod Family Foundation City Lighting Products Company City of Ballwin City of Saint Louis Ms. Karen A. Clawson Dr. Molly Cline and Mr. Steven Cline Code Consultants, Inc. Collaborative Strategies, Inc. Reverend John P. Comer Ms. Myra Conklin

physician and was known for being a wonderful, kind man in his personal life.”

“He was a great surgeon technically,” Fiore says. “His book, ‘Atlas of Infant Surgery’, is one of the classic books published on pediatric surgery.”

In 2008, the J. Eugene Lewis Jr., M.D., Chair in Pediatric Surgery was funded by the Board of Governors of Cardinal Glennon Children’s Foundation. The chair is held by Dennis W. Vane, M.D., M.B.A., chief of the division of pediatric surgery at Saint Louis University School of Medicine and surgeonin-chief of SSM Cardinal Glennon.

Dr. Lewis is survived by three children, James E. Lewis III; Linda McCoy and Elizabeth Panke; grandchildren Rachel and Jamie Lewis, Whitney, Sean, Andrew and Lindsey McCoy; and Samuel and Beth Panke; a sister, Mildred Settlage; and a sister-in-law, Margaret Jean McKee. His wife, Betty Brooks McKee Lewis, died in 2006.

Dr. and Mrs. J. Michael Conoyer Consort Homes Ms. Christine M. Cool Mr. and Mrs. Mike Cordell Corizon, Inc. Mr. Kevin A. Corno Mr. Harold D. Cosma Covidien Mr. Donald W. Cramer Crossroads Elementary School Crown C Supply Company, Inc. Mr. and Mrs. Frank A. Czajka Dana Brown Charitable Trust Mr. and Mrs. Gerry D’Angelo Danis Charitable Trust Danna McKitrick P.C. Ms. Carol J. Daughtry Dave Sinclair Buick-GMC Mr. Alex David Mr. and Mrs. Darryl W. Davis Mr. Derrel D. Davis Mrs. Sarah A. Dawson

Mr. Thomas M. Day, Jr. Mr. Mark D. Deany Ms. Nancy J. DeFabio Mr. Joseph Demand Mr. and Mrs. Robert Depung Mr. and Mrs. George B. Desloge Mrs. Frances C. Dickerson Dicom, Inc. Diversified Packaging Corporation Mrs. Nettie Dodge Mr. and Mrs. Leo J. Donovan Mr. Michael Doyle Drury Hotels Company, LLC Mr. and Mrs. William DuBois Mr. Kenneth W. Duenke, II Dr. and Mrs. Joseph M. Dugan Mr. Martin D. Dull Mr. and Mrs. Thomas M. Dunn, Sr. Mr. and Mrs. Douglas Dwyer E. T. Simonds Construction EdwardJones Mrs. Hannah Ehrlich

Gifts Gifts received receivedfrom fromFebruary February1,1,2013 2013 to to July July 31, 31, 2013 • 49 43

Spotlight Moore Family Giving Back

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Mark Delano expressed his thanks by presenting a gift from his aunt and uncle in the amount of $50,000 for the Cleft Cranio Facial Center at SSM Cardinal Glennon.

orn with a cleft palette, Mark Delano had his first surgery at Cardinal Glennon Children’s Hospital when he was just seven days old. The surgery to close his palette was performed at 18 months.

His Uncle Cleo and Aunt Ruth Moore were very close to Mark and often took him to the farm to offer a diversion from the challenges in his life.

His brother Jon soon tagged along on these trips which began a relationship that lasted for years between the four of them. Cleo lost his leg in World War II and was awarded a bronze star and a purple heart from the United States Army.

As the boys grew older, they “became Cleo’s legs”, helping him with chores on the farm and they learned to drive cars and motor bikes from Cleo.

Cleo passed away in 2005 and Ruth passed away in the fall of 2012. They left money to several charities in their will, one of them SSM Cardinal Glennon. They wanted to give back to the hospital that took care of their nephew and gave him a normal life as a result of his surgery.

Ruth and Cleo were forever grateful for the care Mark received at SSM Cardinal Glennon. Mark expressed his thanks by presenting a gift at Glennon Gallop from his aunt and uncle in the amount of $50,000 for the Cleft Cranio Facial Center. Dr. Alexander Lin accepted the check in front of a crowd of 1,200 on behalf of the medical center.

Gifts of Friendship

SSM Cardinal Glennon Children’s Medical Center warmly thanks the following benefactors for their gifts of $250 and above designated for specific programs or for the unrestricted Children’s Fund.

Mr. and Mrs. John F. Eilermann Mr. Stephen Eisele Mr. Travis W. Elliott Ms. Jan Elsbach Emerson Electric The Emerson Charitable Trust Mr. Aaron R. Emig Enterprise Bank and Trust Mr. and Mrs. Thomas W. Epstein Esse Health Mr. Patrick Fahey Fairway Elementary Mr. Mark Fedak Mr. and Mrs. David B. Feldewerth Mr. and Mrs. Joe Fels Mr. and Mrs. James H. Ferrick, Jr. Mr. and Mrs. Wilbur G. Fienup Mr. and Mrs. William J. Fienup Fifth Third Bank

Mr. Gary W. Findlay First Clover Leaf Bank First National Bank Mr. Robert T. Fischer Mr. and Mrs. Gary D. Fisher Mr. and Mrs. Stephen L. Fitzgerald The Fleur de Lis Ms. Rose J. Fogarty Franklin Mechanical, Inc. Miss Margaret M. Friedhoff Ms. Mary I. Friedhoff Mr. Albert J. Froesel Miss Klara E. Frommherz Mr. Richard L. Funk G & W Roofing Company, Inc. Mr. Vincent Gagliardi Mr. and Mrs. Charles A. Galli Mr. and Mrs. Walter J. Galvin Ms. Mary Carolyn Gamache

50 • Glennon Friends

Garden View Care Center Inc. Mr. Paul Garner The Gatesworth Gateway Combined Federal Campaign Gateway Grizzlies Mr. Herbert J. Gebhart, Jr. Ms. Jean Gebhart Genex Financial Mr. and Mrs. Timothy Genovese George A. Capps Memorial Foundation Ms. Melanie Gibson Mrs. Peggy A. Gilligan Mr. and Mrs. Dennis G. Gipson Dr. and Mrs. Bryon J. Gorton Grasser Electric Corporation Mr. and Mrs. Linwood N. Gray Great Southern Bank Greensfelder, Hemker and Gale, P.C. Mr. and Mrs. Robert C. Griesbauer

Mr. and Mrs. Robert E. Guilander Mr. and Mrs. David Guilbeault The Guth Foundation Mrs. Kathleen M. Haferkamp Ms. Janet F. Hagedorn Mr. and Mrs. William Hailstone Mr. Daniel J. Hammel Mr. Mark Hanneke Mrs. Shirley J. Hanneke Mr. and Mrs. Damon R. Harbison Hardee’s Food Systems, Inc. Mr. and Mrs. Scott Harris Mr. and Mrs. Gary F. Hartnell Mr. and Mrs. James M. Havel Mrs. Michelle A. Hawk Hayward Baker Mrs. Dorothy J. Heagney Dr. Mary S. Heaney and Dr. Robert M. Heaney

Spotlight Drea’s Dream Music Soothes The Soul

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ou’ve probably heard the phrase, “music soothes the soul.” Dance and movement also have the same uplifting effect, especially on patients at SSM Cardinal Glennon Children’s Medical Center. For the past year, Becky Brittain, PhD, R-DMT, a registered dance movement therapist, has visited hospitalized pediatric cancer patients to provide

mother and president of The Andrea Rizzo Foundation.

In addition to being supported by the Foundation, Brittain’s work is funded locally by the Pazazz Performers, a pre-professional dance troupe of the St. Louis Academy of Dance. Earlier this year, the troupe, under the direction of Kacy Voscuil and Emily Edwards, held a fundraiser at the Touhill Performing Arts Center with half of the proceeds going to support Drea’s Dream. “Their generous support makes this program possible at Cardinal Glennon,” says Brittain. “I wish everyone could see how the children light up with big smiles during our sessions. With continued support, we are looking forward to expanding this wonderful program to pediatric cancer patients receiving outpatient care.”

them with opportunities for creative self-expression and therapeutic movement.

“Children with serious diseases need to release tensions, stress, irritability,

sorrow, pain in body and mind and restore natural rhythmic flow,” says Brittain, who has more than 30 years of experience as a dance movement therapist. “When I engage them in music, movement and using their creative imaginations, the impact can be dramatic, enabling them to experience a greater range of feelings, including joy.”

The dance movement therapy program, called Drea’s Dream, is part of a national project established by The Andrea Rizzo Foundation. The Foundation funds pediatric dance therapy programs for children with cancer and special needs and is named for Andrea Rizzo, a childhood cancer survivor and lifelong dancer. “She wanted to share the impact that dance had on her own healing with children who were going through many of the same struggles she endured – cancer and learning disabilities,” says Susan Rizzo Vincent, Andrea’s

Mr. Tim Heimann Mr. and Mrs. Michael H. Heinz Ms. Minnie Heitkamp Mr. and Mrs. Edward T. Hempstead Mr. and Mrs. Terry Henderson Mr. Joseph Hendrickson Ms. Diane Hendrix Mr. Robert C. Henke Ms. Mary B. Henterly Mrs. Faith Herbers The Herman T. and Phenie R. Pott Foundation Ms. Jeanne M. Hermann Mr. and Mrs. Jeff Heveroh Mr. and Mrs. Edward D. Higgins Mr. and Mrs. Bradley Hill Mr. and Mrs. Timothy M. Hill Mr. and Mrs. Charles E. Hoffman Mr. and Mrs. Michael R. Hogan Holcim (US) Inc. Mr. and Mrs. Matt Holliday Holy Infant School Holy Spirit Catholic School

Ms. Stephanie M. Hosler Mr. and Mrs. Christopher Howard Mr. and Mrs. James W. Hrubes Dr. Charles B. Huddleston Ms. Marion Hug Dr. Christopher W. Hugge Mrs. Phonse Hurley-Brandon Hussmann Corporation Mr. and Mrs. Lawrence Idoux Imagery Marketing Consultants Immaculate Conception School - Dardenne Immaculate Conception School Old Monroe Mr. and Mrs. Steven N. Ippolito J. F. Electric, Inc. J. H. Berra Construction Company, Inc. J.W. Terrill, Inc. Mr. Dennis J. Jacknewitz Mr. and Mrs. Arthur J. Jacobsmeyer Mr. Gary Jaffe Ms. Eileen Janey Mrs. Mary Anne Jerabek

JHB Properties, Inc. Mr. David Jockenhoefer Ms. Jill Joerling Mr. and Mrs. Keith Johaningmeyer Ms. Stephanie L. Johnson Ms. Jill Johnston The Jordan Charitable Foundation Junior Gateway Grizzlies Kaiser Electric Inc. Ms. Virginia Karwoski Kash J. Dean Memorial Fund Mr. Ray E. Keefe Mr. and Mrs. John S. Kennedy Mr. and Mrs. Joseph J. Kenny Mr. Robert Keppel Mr. John F. Kerns Reverend Paul J. Kersgieter Mrs. Ann J. Key Theodore A. Kienstra Foundation Kienstra Enterprises, Inc. Mr. and Mrs. Leo P. Kilcullin Mr. Robert E. Klopmeyer Knights of Columbus Columbian

“I wish everyone could see how the children light up with big smiles during our sessions.”

Charities of Missouri, Inc. Knights of Columbus 4th Degree Olney Assembly Council No. 0229 Knights of Columbus Ascension Council No. 11139 Knights of Columbus Bishop John N. Wurm Council No. 1376 Knights of Columbus Buckner Sante Fe Council No. 7055 Knights of Columbus Columbia Newman Center Council No. 7231 Knights of Columbus Crusaders Council No. 11146 Knights of Columbus Effingham Assembly Council No. 0214 Knights of Columbus Fr. Bernard Donnell Council No. 10746 Knights of Columbus Fr. Jeremiah Murphy Council No. 6435 Knights of Columbus Hermann Council No. 1914 Knights of Columbus Highland Council No. 1580

Gifts received from February 1, 2013 to July 31, 2013 • 51

Spotlight Monday Ministries

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very Monday at the Fellowship First Baptist Church in High Ridge, Mo., a small group of ladies settle down to socialize and “do the Lord’s work” with their hands.

With bundles of donated fabric and thread, the ladies sew baby quilts for children at SSM Cardinal Glennon Children’s Medical Center and the Missouri Baptist Children’s

Asked why they dedicate so much of their time to others, she says, “There’s a need for it. We want to make life a little better for the homeless and for sick children.”

They choose brightly colored fabrics to brighten a child’s day. Once done, many of their quilts are sent to American Cleaners on Olive Road, which cleans the blankets for free. Monday Ministries then either partners

“It’s our way of doing the Lord’s work and spreading His love around.”

Home. They also make simple sleeping bags and tote bags filled with personal hygiene supplies for the homeless as well as colorful dresses for girls in Haiti.

“They’ve been doing this for more than 10 years,” says Pastor Chris Lybarger. “I’m extremely proud of these ladies because they’re taking ministry to the streets and are accomplishing incredible things.”

Judy York has coordinated the group, called Monday Ministries, for several years.

with Baskets of Hope or gives the blankets directly to organizations. “We went to Cardinal Glennon one time to deliver the blankets and it was a big experience when we saw the little babies in the neonatal unit,” says York. “It’s just a good feeling to know that we can do something to help people. It’s our way of doing the Lord’s work and spreading His love around.”

They’ve quilted hundreds of baby blankets over the years, each with a Bible verse sewn in. Because of their

Monday Ministries Quilting Club at First Baptist Church in High Ridge, Mo.

prolific handiwork, Monday Ministries has an ongoing need for donations of cotton and polyester fabric and thread. They also have several donated sewing machines that can be used by new sewers who want to join the group. “We’d love to have more people involved,” York says.

“The more we can do, the more we can continue our mission.”

Fabric and thread donations can be sent direct to Fellowship First Baptist Church, 2735 High Ridge Blvd., High Ridge, Mo. 63049.

Call the church office at 636-376-4500 if you’d like to get involved.

“The more we can do, the more we can continue our mission.”

Gifts of Friendship

SSM Cardinal Glennon Children’s Medical Center warmly thanks the following benefactors for their gifts of $250 and above designated for specific programs or for the unrestricted Children’s Fund.

Knights of Columbus Henry Bruns Council No. 6244 Knights of Columbus Holy Family Council No. 14266 Knights of Columbus Holy Infant Council No. 10794 Knights of Columbus Immacolata Council No. 11794 Knights of Columbus Ladies Auxiliary Desmet Council No. 742 Knights of Columbus Moberly Council No. 995 Knights of Columbus Mount Vernon St. Susanne Council No. 7516 Knights of Columbus Msgr James Patrick Burke Council No. 2964 Knights of Columbus Old Monroe Council No. 10144 Knights of Columbus Olney

Council No. 1352 Knights of Columbus Queen of All Saints Council No. 10136 Knights of Columbus Saint Anthony’s Council 8588 Knights of Columbus Saint Catherine Laboure Council No. 12323 Knights of Columbus Saint Paul Council No. 6415 Knights of Columbus St. Mary’s Council No. 3790 Knights of Columbus Wardsville Osage Bend Council No. 8399 Knights of Columbus Kaskaskia General Assembly 4th Degree Fort Knights of Columbus Illinois State Council Mrs. Jane F. Knobbe Koch Development

52 • Glennon Friends

Ms. Betty A. Kolb Kolbe Productions LLC the 9s Magazine Ms. Julia Kolinski Mr. and Mrs. James G. Koman Mr. and Mrs. James R. Korbelik Mr. and Mrs. Gerald E. Krausz Mr. Jacob B. Krebsbach KSDK Television Mr. and Mrs. John C. Kueneke Ms. Kathy A. Kuhlenbeck L. Keeley Construction Mr. and Mrs. Donald P. Lamers Lathrop and Gage LLP Dr. Stanley L. Lawson Mr. and Mrs. Michael J. Lebrun Mrs. E. Desmond Lee Lemay Concrete Block Company Mrs. Patricia Lengermann

Mr. and Mrs. Robert G. Leonard Mr. and Mrs. Stephen R. Leskovsky Mr. and Mrs. David N. Levin Lewis, Rice and Fingersh, L.C. Liberty Mutual Foundation Lighting Associates Lincoln Middle School Mr. and Mrs. Gerald J. Lipinsky Mr. and Mrs. Paul Litteken Mr. and Mrs. Mark Livingston Dr. Mark Lobstein Lockton Companies Lovejoy Elementary Mr. Alexander J. Lovshin Lowery Holdings, III LLC Mr. and Mrs. Stephen Lozier Mr. and Mrs. Bernard E. Luebbert Dr. Jessica R. Luitjohan Lutheran High School South

Spotlight Gateway Grizzlies Baseball

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SM Cardinal Glennon treats children from Missouri, Illinois and beyond. The new Cardinal Glennon KidZone at the Gateway Grizzlies ballpark is the perfect way to stay connected to our Illinois families! Thanks to a gift from our good friend and donor, Lou Mund, we decked out the KidZone play area in style, providing a safe place for kids to play while they are taking in the game.

Kids can climb the bars, slide down the slides and get their pictures taken with Rally Squirrel himself.

We held a raffle all season giving fans a chance to win a Matt Holliday autographed bat and a David Freese autographed glove! Congratulations to our lucky winners, Ann Olendorff and Will Hosack.

If you didn’t get a chance to visit in the 2013 season, be sure to visit next summer in 2014. For more information visit gatewaygrizzlies.com.

Ms. Karen Lynch Mr. and Mrs. Patrick G. Lyons Mr. and Mrs. Charles L. Lytton Mr. Franklyn Macaron Ms. Shirley J. Macaron Mr. and Mrs. Stephen C. Mager Dr. and Mrs. Raman Malhotra Ms. Carole C. Mange Mr. Dan Mangus Marcone Supply Mardi Gras, Inc. The Marian Foundation Dr. and Mrs. Alexander Mark Mrs. Jennie E. Masnica Massage Envy MasterCard Matching Gift Program MasterCard Worldwide Mrs. Jayne J. Mastin Matter Family Office Ms. Joanna May Mr. and Mrs. W. Thomas McGhee Mr. and Mrs. Mark E. McGraw

McKelvey Homes Mr. and Mrs. Terrence J. Mehan Mr. and Mrs. Robert M. Merenda Mr. and Mrs. Mark Mersmann Metro East Lutheran High School Mr. and Mrs. Leo J. Meyer Mr. and Mrs. Stephen L. Miller Ms. Jeanne Miller-Wood Mr. and Mrs. Allen G. Minks Mississippi Valley Regional Blood Center Missouri Athletic Club Missouri Drywall Supply, Inc. Missouri Foundation for Health Missouri State Employees Charitable Campaign Missouri Valley Conference, Inc. Ms. Stephanie Moll Ms. Jeannie Mollohan Moneta Group, Inc. Monsignor Sullivan Benefit The Monsanto Fund

Mr. and Mrs. Donald B. Moore Morgan Keegan Settlement Ms. Cindy Morgenthaler Mr. and Mrs. Eugene A. Morgenthaler, Jr. Mr. and Mrs. Michael Morris Mrs. Rosalie Mozinski Mr. Michael L. Mudd Mr. and Mrs. Patrick J. Murphy Dr. and Mrs. William C. Nash National Football Foundation and Hall of Fame, Inc. Mr. and Mrs. Richard A. Navarre Mr. Patrick A. Nero Newton One Advisors Delaware Office Mr. and Mrs. Charles Nicolais Dr. David A. Nile Mr. Edward W. Nobbe Mr. Richard G. Nolan Mr. and Mrs. Thomas M. Noonan Nordstrom, Inc.

Northern Trust Bank Notre Dame Pre-School Nu Way Concrete Forms, Inc. Mr. and Mrs. John J. Oefelein Mrs. Jo A. Oertli O’Fallon Township High School Ms. Joan B. O’Hara Old Forty, LLC Dr. and Mrs. Jerome H. O’Neil, Jr. Optima Graphics Ms. Kelly Ottensmeier Mr. William Otto Mr. and Mrs. Richard A. Overton Painting Solutions Mrs. Mary H. Paletta Parameter Security Peabody Energy Mr. and Mrs. David Peacock Mr. D. Scott Pearson Mr. and Mrs. Alan Perry Perryville High School Dr. and Mrs. John R. Peter

Gifts received from February 1, 2013 to July 31, 2013 • 53

Spotlight Pretty Baby Contest 2013 For 33 years the Ballwin Day Festivals has held a “Pretty Babies” contest, as judges scour through pictures of wide-eyed smiles and giggly faces of the cuddliest kids around the area. This year 32 babies entered the contest, raising $1,720 for the kids at SSM Cardinal Glennon. Since the start of the contest in 1981 the total amount of donations has grown to be a whopping $68,829.

Congratulations to this year’s winners!

Dylan first place

Zahara third place

Luke second place

Brady fourth place

Aly’s Art Drive “I’ve watched kids at the Costas Center every week making masterpieces at the art table. I don’t know any kid who doesn’t love crayons,” says Connie

Mo. A call for donations was issued to friends and family.

This year, the second for the drive, gathered 1,407 coloring books, water colors, crayon boxes, markers, stickers, glue

“The art helps take their mind off therapy because they are busy making art.”

Bauman. Her daughter, Aly, has been visiting SSM Cardinal Glennon Children’s Medical Center since she was two weeks old for treatment of rare conditions affecting her intestines and lymphatic system.

Art therapy in the Costas Center has been an essential treatment for hundreds of patients Aly and Connie have met. “The art helps take their mind off therapy because they are busy making art,” Mom says.

Last year Aly came up with a plan to collect more art supplies for patients at SSM Cardinal Glennon.

“We decided to do an art drive during August when school supplies are on sale,” Connie said. A collection box was placed in the family’s church in Ste. Genevieve,

and scissors for patients throughout the hospital.

“Child life and art therapy have made a big difference in our visits,” Connie says.

“Maybe we will put a smile on some other kids’ faces.”

Gifts of Friendship

SSM Cardinal Glennon Children’s Medical Center warmly thanks the following benefactors for their gifts of $250 and above designated for specific programs or for the unrestricted Children’s Fund.

Mr. Scott R. Pfau Mr. Roy Pfautch The Pfizer Foundation Matching Gifts Program Ms. Stefanie A. Pier Mrs. Dolores B. Pilla Mr. and Mrs. Tres Poe Mr. and Mrs. Linus J. Portman Ms. Amy Portz Mrs. Joan C. Powell Mr. and Mrs. Gerald W. Prante Mr. and Mrs. Charles H. Pratt Ms. Maria G. Price Mr. Tom Price Protiviti - Independent Risk Consulting Mr. and Mrs. Harold W. Prow Mr. Leonard D. Pullis Queen of All Saints School Mr. Jeffrey N. Quinn and

Dr. Jennifer S. Quinn R. V. Wagner, Inc. Raineri Building Materials, Inc. Mr. James B. Rascher Ms. Marie A. Ravarino Dr. Robert S. Ream and Dr. Sheryl Ream Dr. and Mrs. Kenneth G. Reinert Mr. and Mrs. Kenneth W. Reller Renaissance Financial Corporation Mr. and Mrs. Robert D. Richter Mr. James W. Rieck Ms. Ava R. Ringhausen Mr. and Mrs. Jerry E. Ritter Mr. and Mrs. Todd Robbins Robert Family Holdings Incorporated Mr. Zachary Robinson Mr. Johnnie M. Roe Ms. June Roesslein

44 • Glennon Friends 54

Mr. and Mrs. H. J. Rohatsch Mr. and Mrs. John M. Rooney Mr. Jeff Rosen Mr. and Mrs. Donald L. Ross Ms. Cristie B. Rossel Mr. and Mrs. George J. Roth Mr. and Mrs. John Rothkopf Mr. and Mrs. Daniel J. Rubery RubinBrown LLP Mr. and Mrs. Dennis R. Ruth Mrs. Lynn Ryan Mr. and Mrs. Robert G. Ryan Dr. and Mrs. H. Farouk F. Sadiq Saint Ambrose School Saint Angela Merici School Saint Catherine Laboure School Saint Charles County Paramedic Association Saint Dominic High School

Saint Ferdinand Catholic School Saint Francis Borgia Regional High School Saint Gerard Majella School Saint John Vianney High School Saint Joseph School - Cottleville Saint Justin the Martyr School Saint Louis Cardinals, L.L.C. Saint Louis County Treasurer Saint Louis Dairy Council Saint Mary Magdalen School Saint Monica Parish Saint Paul School Saint Simon the Apostle School Saint Theodore School Saint Vincent Elementary School Saints Joachm and Ann Catholic School Saks Fifth Avenue Mr. Leo Saltzman

Spotlight Connor Tinnin This giving program sponsored by Glennon Ambassadors allows families to honor a caregiver who especially impacted them, by making a financial gift in their name. Staff members recognized as a Light of Hope from February to September 2013 with a gift made in their name include:

Kara Kahmke Kathy Keenoy Kelly Kiel Dr. Alan Knutsen Barb Kountzman Kate Kozemczak Jeff Kuhlmann Dr. Alexander Lin Lisa Lubsch Dr. Jasmin McGinty Dr. Christopher Molitor Dr. Renuka Peterson Renal Department Candace Robnett Wendy Sanders Dr. Anthony Scalzo Peggy Schneider Abigail Sharamitaro Dr. Elaine Siegfried Mary Pat Spillane Tambra Stutes Dr. Jeffrey Teckman Julie Voegtlin Amy Weston Peggy Winter Dr. Ellen Wood

Dr. Saadeh Al-Jureidini Dr. Michael Bunis Sister Judy Carron Dr. Dary Costa Dr. Oscar Cruz Dr. Sadiq Farouk Laura Delaney Dr. David Dempsher Mindy Dettenwagner Katie Dippel Pat Johnson Farson Dr. William Ferguson Dr. Andrew Fiore Dr. Casimir Firlit* Dr. Rob Fleming Dr. Thomas Foy Dr. Gordon Gale Dr. Jeremy Garrett Carolyn Guidry Anna Harper Terra Hollins Sharon Holt Dr. Charles Huddleston Jodi Hundley David Ish Calvin Jaquess Kimberly Jeske

*Deceased

Mr. and Mrs. James A. Sandfort Mr. and Mrs. Anthony F. Sansone, Sr. Mr. John R. Sares Mr. and Mrs. Jesse D. Satterlee, Jr. Mrs. Christine Savage Mr. and Mrs. Chuck Schasteen Mr. and Mrs. William J. Schicker Mr. Dale J. Schillinger Mr. Patrick C. Schlitt Mr. Jason Schmidt Mr. and Mrs. Steve Schmidt Mr. Thomas Schmittdiel Ms. Ellen J. Schneiderman Dr. Kenneth O. Schowengerdt and Dr. Joyce M. Koenig Mr. Howell Schroeder Mrs. Kristie Schulz Mr. and Mrs. Steven A. Schumm Ms. Peggy Scott Scottrade Professor Carol Shahriary Mr. and Mrs. Joseph F. Shaughnessy

Mrs. Joan B. Sheehan Ms. Debbie Sieck Ms. Margie Siegel Mr. Terrell L. Simms Mr. Albert L. Simpkins Mr. and Mrs. Randall J. Singer Mr. David Sisk Ms. Mae O. Skubiz Ms. Rebecca A. Smythe Sodexo, Inc. Mr. and Mrs. Michael Sommers Mr. and Mrs. John T. Spaay Specialized Response Solutions Dr. Kimberly L. Spence Mr. Brent Spicuzza Mrs. Kathryn Splinter Sportservice Mr. and Mrs. G. David Sprehe, Jr. SSM Health Care - Saint Louis Mrs. Susan Staub Mrs. Mary F. Stevenson Mr. John V. Stier

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onnor Tinnin was going to spend a few days in the hospital while he recovered from an infection resulting from a ruptured appendix. He decided to pass the time by collecting donations from his visitors

to benefit other kids at SSM Cardinal Glennon Children’s Medical Center.

He wanted to do something “to help the kids that have to be in the hospital a lot longer than me,” he says. The program quickly grew and kept growing.

His initial fundraising goal of $200 was met in 30 minutes.

Parents and family friends suggested that he expand his efforts to the internet, so his father posted news on a Facebook page. The family opened a bank account and started an account at a web site that processes charitable donations. He had his own website, connortinnin.com.

As each contribution was posted, his father Jason says, Connor would do a fist pump and proclaim “yes!”

A revised fundraising goal of $1,000 was reached in 72 hours.

His father asks Connor for a new goal. “Dad, it was $200 and now it’s $1,000; why is $5,000 too much?” Connor replies.

The project continued after Connor returned home to Farmington, Mo. By late summer his contribution total had surpassed $2,000, all earmarked for the Cardinal Glennon Children’s Foundation,

“Dad, it was $200 and now it’s $1,000; why is $5,000 too much?”

Connor, 8, made a donation box during his first evening at the medical center in July. His mom, Amy, thought the box construction would be a great distraction from his abdominal pain and sickness.

and Connor was confident that his goal would be achieved.

“He has no boundaries or limits, he just dreams,” his father says. “He thinks anything is possible.”

Mr. Kent Stock Mrs. Judy Streif Mr. and Mrs. Francis A. Stroble Mr. and Mrs. William C. Stude, Jr. Suddenlink Communications Ms. Marian Suhl Mr. and Mrs. Olen J. Suire Mr. and Mrs. Daniel J. Sullivan Reverend James M. Sullivan Mr. and Mrs. John R. Sundy Mr. Andrew R. Sutton Mr. and Mrs. Timothy K. Swank T & M Excavating Company, Inc. Target Corporation Ms. Kathryn T. Tarka The Taubman Company, LLC Mr. Richard D. Taylor Ms. Susan O. Taylor Teutopolis Jr. High School Reverend James P. Thomas Mr. and Mrs. John E. Thomeczek Thompson Coburn LLP

Mr. and Mrs. William P. Thompson Ms. Patricia N. Tressler Ms. Barbara J. Truetken TRUIST Trustworthy Land and Title Company, Inc. Mr. and Mrs. Anthony G. Tumminello Mr. and Mrs. James S. Turley Mr. and Mrs. Russell Tweedy UMB Bank of Saint Louis, N.A. Ms. Jane Unger Union Pacific Corporation United Way of Central Indiana, Inc. US Bancorp Foundation US Paint Corporation Mr. and Mrs. Joseph A. Valenti Mrs. Julie Van Etten Ms. Nancy T. VanCleave Dr. and Mrs. Dennis W. Vane Vee-Jay Cement Contracting Company Inc. Mr. Daniel A. Viers

Gifts received from February 1,1, 2013 to July 31, 2013 2013 • 43 Gifts received received from from August February 1, 2012 2013 to January 55

Spotlight Pain Management

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“

he research that shows that music can help children be distracted and remain calm when they come into the hospital, especially into the emergency room,” says Debby Brauch, director of grant development for Cardinal Glennon Children’s Foundation.

friends

The Foundation purchased Kindle e-book readers for the Child Life staff at SSM Cardinal Glennon Medical Center and patients in the Dan Dierdorf Emergency and Trauma Center. The devices were loaded with the Pandora app, an Internet-based music service. The Kindles access Pandora through the hospital’s wireless computer network

system and allow patients to select a favorite genre of music.

A grant to the Foundation was used to purchase a large supply of ear buds for patients listening to music from Pandora.

“Our Child Life specialists now have another resource to reduce the fear that children have when they come into the emergency room and may need procedures that are unpleasant,” Brauch says.

The purchases were made with more than $6,500 in proceeds from the 2012 Dierdorf Pronger Golf Classic.

Every grant to the Foundation can make a big difference in the lives of patients at SSM Cardinal Glennon, she says. “We receive many grants in small amounts. Even though Cardinal Glennon is a very big organization, we put a lot of thought into what we can do with that money.

We wanted to use this grant in a meaningful way to be good stewards of the donor’s money – to make an impact by reducing the pain and anxiety kids experience in the emergency room.”

Gifts of Friendship

SSM Cardinal Glennon Children’s Medical Center warmly thanks the following benefactors for their gifts of $250 and above designated for specific programs or for the unrestricted Children’s Fund.

Visitation Academy Ms. Bernice Voosen Mr. and Mrs. E. William Voss Ms. June M. Voss Mr. and Mrs. Joseph M. Waechter, Jr. Ms. Leonor O. Wall The Wal-Mart Foundation Walsh and Associates, Inc. Mr. and Mrs. Brian T. Walsh Mr. Patrick J. Walsh Warren County Concrete LLC Washington University in St. Louis Mr. and Mrs. Edward C. Weatherhead Mr. Donald V. Webb Mr. Bertram H. Wehde Ms. Susan C. Weilbacher Mr. Donald N. Weis Reverend John H. Weis Miss Paula Welker

Wells Fargo Community Support Campaign Ms. Mary S. West Western Construction Group Western Ready-Mix, Inc. Ms. Mary Westmann White Oak Resources LLC Wholesale Plumbing Supply Company, Inc. Mr. and Mrs. Charles J. Wiegers Mr. and Mrs. William F. Willbrand, Jr. William S. Kallaos Family Foundation Dr. and Mrs. Robert W. Wilmott Ms. Julie Wilson Mrs. Jaye Winkelman Mr. and Mrs. Stanley Wiseman Mr. and Mrs. Robert J. Witterschein Mr. and Mrs. Ronald Woerndle

56 • Glennon Friends

GIFTS OF Bequests SSM Cardinal Glennon Children’s Medical Center warmly thanks the following benefactors for their gifts of $250 and above designated for specific programs or for the unrestricted Children’s Fund.

Estate of Ruth C. Brink Estate of Dr. John Coughlin Estate of Dora Emnett Estate of Willy Hance Estate of Rosemary T. Hennessy Estate of Norma E. Kaup Estate of Marco Matranga Estate of Harold J. Myers Estate of Mary Nunemaker Estate of George and Mary Ries

Estate of Robert Schlueter Estate of Monsignor Jerome O. Sommer Estate of Sidney and Sylvia Souers Estate of Vincent F. Stotko Estate of Mary Ann Teter Estate of Helen M. Wansong Estate of George Windler

We regret the passing of the following Glennon Society Members February 1 to July 31, 2013 Mr. and Mrs. Richard Annett Mrs. Alida Boudreau Ms. Nora Coleman Mr. Thomas Deehan Mr. George Malone Mr. John C. Miller Mrs. Ethel Oldendorph Mr. Chester Sommers

Monsignor Ted L. Wojcicki Mr. Leonard A. Woker Mrs. Dorothy Wolf Dr. and Mrs. Chris Wolken Woodard Cleaning and Restoration, Inc. Mr. and Mrs. Daniel E. Woods Monsignor Thomas J. Woracek World Wide Technology, Inc. Mr. and Mrs. Michael J. Worley Mrs. Irene E. Wuertz Mr. James H. Wuller Mr. Elliott Yorke Mrs. Cathy Yost Mr. and Mrs. James A. Young Ms. Leann Zerkel Mr. and Mrs. Anthony Zezzo Ann and Ken Zimmerman Zoltek Corporation

Mrs. Lynn Zond Mr. Al Zuroweste

To view a complete list of gifts received from February 1, 2013 to July 31, 2013, visit glennon.org and click Ways To Give.

Click and see the Glennon Friends - Gifts Received

This holiday season, brighten your Christmas by sending your loved ones Cards for Kids!

You can customize your card by choosing from a variety of sentiments for family, friends and clients. A pack of 20 cards and envelopes can be purchased for a $20 donation.

Hannah Chaurin, age 14

Jordan BeSore, age 14

Jessie Deutschmann, age 10

Paul Backes, age 16 SSM Cardinal Glennon Patient Emily Thrower, age 14

Buy online at glennon.org. Order by phone at 314-577-5605 or 1-800-269-0552.

Megan Caress, age 14

Where are they now

Trained at the Best Stan Lawson, M.D. 1992 SLU School of Medicine student now Emergency Medicine Physician, Gillette, Wyoming

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mergency physician Stan Lawson, M.D., saw his opportunity to re-connect all the way from Wyoming to SSM Cardinal Glennon Children’s Medical Center while watching a St. Louis Cardinals game on the television. “I saw an ad for Homers for Health, the fundraiser for Cardinal Glennon, and I thought what a great way to give back in memory of my dad and my time there.”

Co-chaired by Cardinals players Matt Holliday, David Freese and Allen Craig, Homers for Health allows Cardinals fans to pledge money for every home run hit by the Cardinals during the 2013 regular season, with all funds going to SSM Cardinal Glennon.

“There was a special opportunity to pledge six or more dollars for every home run hit in memory of Stan Musial to Cardinal Glennon,” says Dr. Lawson.

“I had such a great experience in St. Louis and at Cardinal Glennon, plus I was named after “Stan the Man.” How could I refuse that opportunity? I signed up to be a part of that right away.”

Originally from Missouri, Dr. Lawson’s father left the state in the Great Depression and found work as a railroad engineer in Wyoming. Every chance, he followed news about the Cardinals. When Stan was born, his

“They decided to honor the Cardinals by naming me after one of the greatest ball players ever...” father and four older brothers decided the new baby would be named after that Stan — the great Stan Musial. “They decided to honor the Cardinals by naming me after one of the greatest ball players ever,” laughs Dr. Lawson.

58 • Cardinal Glennon Children’s Foundation

He decided to pursue a career in emergency medicine, at the time a fairly new specialty. He and his brother have worked as emergency medicine physicians at Campbell County Memorial Hospital in Gillette, Wyo., for more than 15 years.

“It was kind of like coming full circle back to Wyoming,” says Dr. Lawson, who now serves as co-director of the Emergency Department. “We have 11 ER physicians.

That may sound like a lot, but Gillette is a remote town with very few specialists, so we provide a vital service. We see about 24,000 patients annually.”

He also mirrors his father, recently buying a 50-acre farm. In between work and farming, he loves to listen to

“I saw an ad for Homers for Health, the fundraiser for Cardinal Glennon, and I thought what a great way to give back in memory of my dad and my time there.”

The family moved back to Missouri when Stan was in fourth grade, settling on a farm.

Growing up meant snapping beans while listening to Cardinals baseball games on the radio. “We’d listen to the games almost every night during the season,” says Dr. Lawson.

“My dad was an avid baseball fan and also coached baseball while we were growing up, so I guess baseball is in my blood.”

Dr. Lawson first earned a degree in chemical engineering and worked for eight years as an engineer with Mallinckrodt in St. Louis. He then decided to change his career and become a physician. “I was looking for a more fulfilling occupation,” he admits. “I visited my brother Ted who was in medical school at Saint Louis University and knew I found the answer to my quest. I decided to go there, too.”

Dr. Lawson completed his pediatric medical school training at Cardinal Glennon Children’s Medical Center. “The staff was always compassionate and very pleasant to work with,” he recalls. “They taught me a lot and were very helpful.”

or watch his beloved Cardinals baseball team.

Lawson’s pledge to Homers for Health places his name among those donors who will be listed on a 7-foot commemorative #6 display at SSM Cardinal Glennon, honoring Musial’s years of fundraising on behalf of the medical center.

He adds, “I’m hoping they will use some of the funds received for pediatric cancer research.

“I think it’s definitely a privilege and an honor to be named after Stan Musial,” he says. “It was also a privilege to train at SLU and Cardinal Glennon.”

Our love for kids just keeps on growing!

Stephanie Kettmann Hall

LIFELONG SSM CARDINAL GLENNON PATIENT • now HIGH SCHOOL NURSE

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tephanie Kettmann Hall still returns to the hospital she says inspired her career as a high school nurse at Lindbergh High School in south St. Louis County. Hall, diagnosed with a rare congenital heart defect, regularly returns to SSM Cardinal Glennon Children’s Medical Center for follow-up visits with her long-time cardiologist Saadeh Al-Jureidini, M.D., director of the medical center’s Cardiac Catheterization Laboratory.

She also serves as a Glennon

Ambassador, helping other families whose children are in the hospital.

“When I was little, my parents didn’t really have anyone to talk to or see with my condition,” Hall says. “That’s why I come back every month to talk with families staying at the Ronald McDonald House.

I can share with them my long experience with Cardinal Glennon and reassure them that they are receiving great care.”

Hall was born with a heart defect called hypoplastic right heart syndrome. The condition, in which a ventricle to the heart is underdeveloped, results in an inadequate blood supply to the lungs. Newborns begin to turn blue due to lack of oxygen

within hours of birth. “They found it 12 hours after I was born and I had my first surgery when I was 36 hours old,” she says.

In total, Hall underwent four surgeries, the most recent when she was 26 years old.

It was while watching one of her cardiology nurses, Mary Pat Spillane, R.N., that Hall started thinking about a career in nursing. “She’s a nurse in the cardiology clinic and really inspired me with the care she gave,” Hall says. After working as a hospital surgical floor nurse, Hall took the job as a high school nurse a year

and a half ago. Now married, she walks two miles every day and credits her continued good health to Dr. Jureidini. “I still see him. Cardinal Glennon is like my second home. I always tell people to go where the best people and the best technology is, and that would be Cardinal Glennon.”

Tyler Jackson 1989 TRANSPOSITION OF MAJOR ARTERIES

now CERTIFIED PERSONAL TRAINER AND FITNESS NUTRITION SPECIALIST

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orking out five days a week is a no-brainer for Tyler Jackson.

The 24-year-old from Oakville, Mo., has made healthy living and fitness the center of his life after surviving a near-fatal congenital heart condition.

Born with his aorta and pulmonary arteries of the heart connected to the wrong sides, Tyler underwent a fairly new surgery at SSM Cardinal Glennon the time called an arterial switch.

“He was 4 days old when he had the surgery, which he needed to survive,” says Tyler’s mother, Mitzi. “It was very

risky, but we were told it could eliminate the possibility of multiple heart surgeries and give him a better chance at a normal life.”

Following surgery, however, Tyler’s heart wouldn’t pump on its own. Doctors placed him on an emergency mechanical heart-assist device. He spent the next two months in the hospital recovering and battling infections.

He finally left the hospital healthy but two pounds less than when he was born.

In elementary and middle schools, Tyler had an active and normal childhood, playing T-ball and basketball. In high school, he took a body-building class to become stronger. As he developed his muscles, his self-esteem soared. “The more I became interested in my own body and being healthy, the more I wanted to help others.”

When he graduated, Tyler got a job at the gym he regularly visited. He then pursued certification as a personal trainer (N.A.S.M.) and nutrition specialist (A.F.P.A). Currently he combines his love of nutrition and fitness as a manager with

Supplement Superstores. “This is a great career and I’m so happy to do what I do,” he says. “I help people reach their goals.”

Tyler has been back at SSM Cardinal Glennon a few times since his initial surgery to treat blood clots and to undergo a procedure to stop an erratic heartbeat that most likely was the result of scar tissue in his heart.

Of his longtime cardiologist, Dr. Saadeh Al-Jureidini, Tyler says, “He’s more than a doctor to me; he’s a friend. He’s definitely the reason why I’m better today.”

“I went through a lot but have been able to bounce back every time. Because the doctors and nurses helped me, I want to help others.” glennon.org Fall 2013 • 59

The Story of the Madonna Della Rocca “Virgin of the Rock” and its connection with SSM Cardinal Glennon Children’s Medical Center Prepared by: Sister Marita Anne Marrah

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his is a beautiful story of the Madonna and a history of the group of people who still continue to honor her in the United States.

The sanctuary where the Madonna della Rocca was placed is situated at the summit of a hill near the city of Alessandria della Rocca in Sicily. The sanctuary was built by the people of Alessandria d. Rocca after a great miracle took place. The Virgin appeared to a gentle girl, poor and blind since birth. One day her mother went to the hill to find wild herbs and plants for food. In the meantime the young blind girl remained alone on a level place. While waiting for her mother a marvelous vision appeared to her. A beautiful resplendent lady said to her, “I am Queen of Heaven.

Go to the authorities and tell them I shall be the patroness of Alessandria d. Rocca and its people. They must build, on this very spot a sanctuary and in it revere my image which is hidden in a cave near here.” The girl was

beginning to wonder if the narrative of her vision would be believed and at that point the Virgin touched her eyes and said, “Now go and they will believe you.”

The apparition disappeared and the girl with great joy and astonishment realize that she could see. The veneration to the Virgin of the Rock spread rapidly.

The faith and devotion of the people was rewarded. A church was built on the place where the Virgin of the Rock appeared. The love and power of the Virgin manifested itself repeatedly and continues to do so to Alessandria d.

Rocca and its people. Thus, the last Sunday in August became a tradition to celebrate the Feast of the Madonna della Rocca, Virgin of the Rock — a celebration which continues today.

Many immigrants from the Sicilian village of Alessandria d. Rocca migrated to the coal mines of Willisville in Southern Illinois where they found work. They carried the tradition of celebrating the feast on the last Sunday in August. This began in Alessandria d. Rocca in 1887. By 1925, many of the people who were originally from Alessandria d. Rocca moved from Willisville to St. Louis. The first actual meeting in St. Louis of the Society of the Madonna della Rocca was held on August 4, 1946.

In 1950, the group conceived the idea of placing a statue of the Madonna della Rocca at Cardinal Glennon Children’s Hospital which was still in the planning stages. In October of that year a letter was sent to Archbishop Ritter asking permission to go ahead with this idea. The Bishop approved of the idea. When the hospital was near completion, the Society received a letter from the Sisters of St. Mary (now known as the Franciscan Sisters of Mary) indicating that plans were in the making for a statue of the Madonna della Rocca to be placed within the hospital. The statue was to be an exact replica of the one in Alessandria d. Rocca. On August 26, 1956 a Mass was

celebrated in the chapel of Cardinal Glennon Children’s Hospital. The statue was blessed and dedicated.

The location was a perfect one. It was placed in an alcove just outside the Chapel doors.

Today in 2013, the statue is still in its place of honor outside the chapel doors. The Society has continued to celebrate Mass every year at Cardinal Glennon‘s Chapel on the last Sunday in August. They have done this ever since the hospital opened in 1956. Following the Mass the group meets for breakfast, spends time socializing with each other, recalling memories from the past and their tradition of celebrating the Feast of the Madonna della Rocca. They take up a collection at Mass and hold a raffle during the breakfast.

This money is then donated to the hospital.

The Sisters missioned to Glennon hosted this event from the time the hospital opened and continues to do so today. Sister Marita Anne (Marrah) has been the host for the Society’s annual Mass, Breakfast and social for the past 35 plus years. Marita Anne was missioned to Cardinal Glennon in 1966 where she served for 41 years as a Speech and Language Pathologist providing diagnostic evaluations and therapy to many children at Glennon who had complex speech/language disorders. Subsequent to her work at Glennon she served on the Franciscan Sisters of Mary’s Leadership Team for 4 years (2007-2011). Currently she volunteers at Cardinal Glennon to host this special event each year as well as participating in other volunteer activities for the hospital and in the local community.

visit I saw Children’s Medical Center. During the Last fall I visited SSM Cardinal Glennon r families with volunteers caring for children and thei firsthand the doctors, nurses, staff and orts the heroic ect. I learned how their dedication supp understanding, expertise and great resp s. who must often overcome medical odd efforts of the patients and their families ides prov non SSM Cardinal Glen , op vel de , ild “Our focus is to bu outstanding care to a diverse the nce ha en d an en strength population and BMO Harris Bank and BMO Private Bank are pleased lives of people in the to support an organization communities we serve...” community. Our involvement with that does so much for the children of our al Bob Costas Event, goes SSM Cardinal Glennon, through the annu ted to expand our Dino L. Cannella back a dozen years. This year we were exci e Ball Relay Senior Vice President sponsoring the Homers for Health Gam and Managing Director association by BMO Private Bank on the St. Louis Cardinals’ opening day. to Seven of our employees were honored carry the ball!

At BMO, we recognize the value of that organizations like SSM Cardinal Glennon focus Our live. to e make our home a better plac HOME OPENER • APRIL 8 nce enha and n gthe stren lop, deve d, is to buil we serve, not only through monetary the lives of people in the communities to loyees’ volunteer efforts. We are pleased contributions but also through our emp ity. mun s, like this one, that enrich our com partner with extraordinary organization healthy, grown daughters, my family As a native St. Louisan and father of two ices of SSM Cardinal Glennon, but I am is blessed to have never needed the serv to serve the children in our region is thankful for its presence. The work it does of its long legacy of service. tremendous. We are honored to be a part

Dino L. Cannella ctor Senior Vice President and Managing Dire BMO Private Bank

Katie Werner of BMO Harris Bank runs with patient Camryn Akerson for a leg of this year’s inaugural Game Ball Relay.

Published by Cardinal Glennon Children’s Foundation 3800 Park Avenue St. Louis, MO 63110 (314) 577-5605 • 1-800-269-0552 email: info@glennon.org glennon.org

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The best gifts under the sun for America’s leading Catholic children’s medical center

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he Glennon Circle supports our mission to reveal God’s healing presence by providing for the unrestricted needs of SSM Cardinal Glennon Children’s Medical Center. The generous spirit of donors in the region and across the United States allows the Cardinal Glennon Children’s Foundation to build and sustain dozens of critical departments, programs and treatment centers at the medical center.

To become a member, visit our website at glennon.org

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