__MAIN_TEXT__

Page 1

Cardiac Risk in the Young Update 53 September to December 2010 News and Events

• raising awareness • our fundraisers

Cardiac Risk in theYoung (CRY) Head Office: Unit 7, Epsom Downs Metro Centre, Waterfield, Tadworth, Surrey KT20 5LR Tel: 01737 363222 Fax: 01737 363444 E-mail: cry@c-r-y.org.uk Visit our websites: www.c-r-y.org.uk • www.sads.org.uk Registered Charity No 1050845


CRY

update 53 September to December 2010

Contact the Editor

Inside Update 53

Mair Shepherd mair@c-r-y.org.uk

Assistant Editor Alison Cox MBE Chief Executive

Contributors Dr Steve Cox Deputy Chief Executive Jemma Wells Medical Secretary to Dr Mary Sheppard Rebecca Zouvani Fundraising Manager

Now on Twitter and Facebook

Meet our County Representatives

Page 3

News from the Chief Executive

Page 4

Newsletter from the Deputy Chief Executive

Page 10

CRY screening report

Page 11

Other CRY News

Page 11

Report from the CRY Centre for Cardiac Pathology (CRY CCP)

Page 12

BUPA Great North Run 2010

Page 14

CRY Awareness Week

Page 19

CRY Durham Riverside Walk

Page 21

CRY Parliamentary Reception 2010

Page 23

CRY / Philips testmyheart Tour 2010

Page 25

Premiership Rugby Screening Launch

Page 28

myheart News

Page 29

Our Fundraisers

Page 31

Raising awareness in the media

Page 65

Fundraising events 2011

Page 75

Cert no. SGS-COC-006445

This magazine is printed on chlorine-free paper taken from a sustainable source using vegetable-based inks.

Submission guidelines We only include activities in the ‘Our fundraisers’ section that raise £100 or more. If you would like to supply a write-up or photos for any fundraising activities that you have taken part in, please email the editor at mair@c-r-y.org.uk Entries appear in the ‘Our fundraisers’ section according to when CRY sends official receipt of monies raised. Articles may only appear in the ‘Raising Awareness in the Media’ section if we have permission from the publishers to reproduce the article. No part of this publication may be reproduced, stored in a retrieval system or transmitted in any form or by any means, electronic, mechanical, photocopying, recording or otherwise without prior permission of the Editor. The Editor and Committee welcome letters but reserve the right to edit when necessary and to withhold publication. Any opinion or statement by the author of any article or letter published does not necessarily represent the opinion of the Editor or Officers of the Committee. Articles pertaining to health related topics are for information only. Readers should obtain advice from their own practitioner before attempting to diagnose or administer any medication. Mention of any products or procedure should not be considered an endorsement for said product or procedure.

2 • CRY update • Issue 53

www.c-r-y.org.uk


Meet our County

Angela Butler

Representatives

himself a car even though he wasn’t yet 17. He lived his life in the fast lane, never wasting time to wonder why or how – in

County Representative for Staffordshire

Nathan’s world anything was possible - and he was loved by Butler.

all who had the pleasure to be part of this vivacious world –

I live in Newcastle under Lyme

he was the life and soul of any event and his friends said that

with my husband Phil - we had

when Nathan entered a room it was a case of “Nathan Butler

2 sons, Nathan and Joshua.

has entered the building – let the fun begin”!

My

name

is

Angela

We were a very happy family spending lots of time travelling

But along with all his fun and frolics was a caring sharing

the country supporting Nathan and Josh with all their sporting

nature of the young man who loved to spend time with his

interests and activities.

family - nanas, granddads, aunties, uncles and cousins - and would do anything to see everybody else happy and enjoying

Wednesday 22 February 2006 started off as another normal

themselves. Nathan had a large circle of friends who have all

day in the Butler household. Josh went off to school, Phil and

done him proud by taking over his mantle of “big brother” to

I went off to work, leaving Nathan in bed as he had a day off

Josh – Josh is now a treasured part of the friendship group

college where he was studying a music technology course.

where Nathan left a gap. Nathan’s friends continue to be part

I went in to check on Nathan before I left the house and he

of our extended family, which is something that helps ease

was tucked up in bed sleeping soundly - even though the

our pain. Seeing them grow and develop into adults has been

boys were 16 and 13 I still checked on them when they were

a great comfort to Phil and I as they were all very important

sleeping just as I had when they were babies.

to Nathan.

By midday it was unusual that I hadn’t heard from Nathan –

The day after Nathan’s death, the coroner telephoned me

he was always in regular contact letting me know where he

to say that the post mortem showed that Nathan had died

was and what was happening in his busy and exciting life. I

of a heart defect. I went onto the internet to investigate and

tried the house phone many times plus his mobile but there

came across the CRY website and read many stories on the

was no reply from either. I thought this was unusual but was

“my story” page of tragic young deaths just like Nathan’s.

not unduly alarmed – I thought perhaps he was out and hadn’t

The support and information provided by CRY, along with the

got a signal on his phone.

constant love and support of our family and friends, has been invaluable in helping us to deal with our grief and rebuild our

I came into the house at 3.45 p.m. – and everything was just

lives without Nathan. This has been a very hard and difficult

as I’d left it in the morning. I went upstairs and found Nathan

journey, one which is ongoing and we will always be grateful

lying on his bedroom floor, where he must have been since

to CRY for helping us to try and make sense of this dreadful

the morning as he was only partially dressed. The scenes

tragic situation.

that followed were horrendous and will stay with us forever – paramedics, doctors and the police but all to no avail and my

I am actively involved with fundraising and this year organised

dearest beautiful eldest son was certified dead! How could

two screening weekends. During these weekends 25 people

this be? Why had this happened? Questions and questions to

were found to have a problem and have been referred on for

which we had no answers?

further investigation. Nathan had an enlarged heart muscle and screening would have picked up this defect and could

Nathan was a very fit and active young man – he was a county

possibly have saved him. However this was not to be for us,

cricket player, a qualified football referee and a swimming

but we will continue to fundraise to raise awareness and to

lifeguard. He had played cricket in Barbados whilst playing for

prevent further young people from having their lives tragically

the county team – we all went along to support him and sadly

cut short and to prevent other families from suffering as we

this was our last family holiday together but one filled with lots

are and always will do.

of happy memories which we will treasure forever. Nathan had three part time jobs, spent his weekends as a DJ doing

Read the full story at www.c-r-y.org.uk/angela_butler.htm

mobile discos at all sorts of events and had already bought

www.c-r-y.org.uk

CRY update • Issue 53 • 3


News

from the

Chief Executive Alison Cox MBE CRY Founder & Chief Executive

South West Regional Bereavement Support Day 12 September

September Great North Swim cancelled 4 and 5 September There was disappointment for our 5 intrepid entrants and 8,995 other participants in the Great North Swim across Lake Windermere, who learned at the last minute that it had been cancelled because of lake algae. We also had to break the news to our “bacon butty team” led by CRY Representative in Cumbria Sharen Stables who had a feast of homemade hot soup and bacon butties awaiting Andy and CRY supporters. Fortunately

The Bristol Golf Club; 17 people registered for this event and groups were led on the day by CRY Bereavement Supporters Julie Donnelly, Anne Reynolds, Vanessa Tardif (pictured) and myself.

CRY / Philips testmyheart Tour launched 18-20 September

Sarah Morgan, Tony Hillier and Matthew Otten were able to transfer their entries over to the Great Salford Swim on 26 September; and Judith Burgess received permission from her employers at Sefton Council to swim a mile across their lakeside facility in Crosby on 24 September. Our celebrity swimmer - The Rt. Honourable Andy Burnham MP - has also said he is looking forward to donning his wetsuit if another swim can be arranged.

4 • CRY update • Issue 53

After the success of the 2009 tour, the second national screening tour was launched – again from Durham – on 18 September.

www.c-r-y.org.uk


News The event, at Tesco’s Dragonville store, was held in memory of Levon Morland.

from the

Chief Executive

CRY Patron Pixie Lott appeared on ITV’s Lorraine show 8 October

For more details and pictures of the tour see pages 25-27.

Andrew Triggs-Hodge MBE becomes a CRY Patron 28 September

As well as performing her new single Broken Arrow, Pixie’s hit Boys & Girls

GB Rowing’s Andrew Triggs-

that she allowed

Hodge

Amesbury School

MBE,

gold

medal

winner at the 2008 Olympic

to perform and

Games, has become a CRY

make into a video

Patron. Andrew says “CRY

for CRY was

used to be an organisation

featured. Pixie

that I thought would only touch

also spoke about

a few people and that I would

her upcoming

be lucky enough not to be one

appearance at the

of those. In 2008 a good friend

CRY Parliamentary

died without warning on a rugby pitch, he was extraordinarily

Reception.

fit and in his 50s; his son was playing in the same game. Ewan Adamson leaves behind his family. In 2009 another good friend

CRY Awareness Week 9-17 October

and fellow rower - again without warning - died on the rowing

Throughout CRY’s Awareness week, and the whole of October,

machine while warming up. Scott Rennie was in his early 20s, fit

our supporters helped us to raise awareness and funds in their

and strong and vying for a slot in the GB rowing team, but was

local community.

denied his chance. For more details and pictures see pages 19-20. Both leave a big hole without them and if there was a chance that an organisation like CRY could have forewarned their fate, then their deaths may have been avoided. I hope that CRY goes

70 people take part in the first CRY Durham Riverside Walk

from strength to strength and I hope to commit as much as I can

9 October

to help this.”

We held this new event to help mark CRY’s 15th anniversary and to launch CRY Awareness Week. The event gave CRY

October

supporters from the North East a chance to meet each other,

CRY Patron Graeme McDowell MBE secures the winning point for Europe in the 2010 Ryder Cup 4 October

enjoy the day and, perhaps in passing, talk about why they had decided to join the walk. Many of those taking part walked in memory of a young person who had tragically died from sudden death syndrome.

Graeme secured the winning point in the final match to win the Ryder Cup for Europe after

an

final

days

enthralling play

at

Celtic Manor. Graeme

recorded

a 3&1 victory over

For more details and pictures of the event see pages 21-22 and

Hunter

www.c-r-y.org.uk/durham_walk_2010.htm

Mahan

to

clinch a dramatic 14.5 to 13.5 triumph for the

CRY Parliamentary Reception

European team.

13 October As part of CRY Awareness Week, we hosted our annual Parliamentary Reception in the Terrace Marquee in the palace

www.c-r-y.org.uk

CRY update • Issue 53 • 5


News

from the

Chief Executive The conference on Friday focused on Sports Cardiology and as always Professor Sanjay Sharma’s research and experience provoked challenging debates. This year the event included talks from CRY Research Fellows Dr Hari Raju and Dr Navin Chandra on the first day and Dr Michael Papadakis who spoke both days. Michael was given this accolade after receiving the 2010 prestigious Young Investigators Award from the European Association for Cardiovascular Prevention and Rehabilitation of the European Society of Cardiology. He was selected after speaking at the EuroPRevent 2010 conference (May 2010), where he presented the abstract of the research paper “Ethnic differences in the electrocardiographic repolarisation patterns in elite male athletes and short-term outcomes”. This abstract was selected as the best scientific work by the Congress Programme Committee, from over 700 submissions. Saturday’s Inherited Cardiovascular Disease conference included a moving account from Health Nurse Paddy Jelen representing “the family perspective” after the loss of her daughter Nina, and

of Westminster. Over 40

Dr Tony Hillier giving “the GP’s perspective” after the loss of his

MPs attended the event and

daughter Laura. Tony’s heart-breaking talk represented every

the Guest of Honour Patron

GP’s nightmare - the impact of being called to try and resuscitate

Pixie Lott received special

a member of your own family. His daughter Laura died suddenly

permission from the Speaker

on a work placement in his surgery. Sanjay also invited me to

of the House to treat the 200

speak on the contribution that bereavement support can make to

guests to a short acoustic

CRY families’ journey through their grief.

set delighting us all with her wonderful voice and natural charm. The event was hosted by Roger Gale MP (Conservative – North Thanet and Chairman of the Cardiac Risk in the Young All Party Parliamentary Group), The Rt Hon George Howarth MP (Labour – Knowsley) and Dr John Pugh MP (Liberal Democrat – Southport). Dr Julian Lewis MP (Conservative – New Forest East) was the very first MP to support CRY in 1997 after the sudden death of his constituent Adrian Woodhead’s young wife Sarah. With Roger Gale unable to take the stand because of illness Julian nobly stepped up to the podium to expertly MC the evening. Speakers included Minister of State for Health Simon Burns MP, CRY’s Consultant Cardiologist Professor Sanjay Sharma, Surgery Supporters Network member James Bailey, and myself. For

more

details

and

pictures

see

pages

23-24

and

www.c-r-y.org.uk/CRY_parliamentary_reception_2010.htm

CRY International Medical Conference 15 and 16 October CRY’s 2 day international academic conferences were offered free to delegates for the first time in appreciation of funding difficulties many medics were experiencing. This was clearly greatly appreciated ensuring a full conference of enthusiastic medics from around the UK. 99 % of delegates were there for the first time and delighted with the quality of the international speakers.

6 • CRY update • Issue 53

www.c-r-y.org.uk


News

from the

Chief Executive

Perhaps the greatest commendation for the success of the event

For more information see 28 or visit www.c-r-y.org.uk/rugby_

was that most of the delegates – who notoriously usually leave

screening.htm

conferences after the tea break – were still there at the close of the event to participate in a dynamic interactive review of Sanjay’s

South East RBSD

case studies – reflecting a very happy audience who emphasised

30 October

how worthwhile the conferences had been.

Meeting of the Coroners Bill Bereavement Charter group 25 October The Bereavement Charter group met with Jonathan Djanogly MP,

Parliamentary

Under-

Secretary of State at the Ministry of Justice for Coronial Reform. The meeting was hastily convened to discuss the difficult issue of funding being withdrawn. Predictably

Held at Wimbledon Park Golf Club, which is funded in memory

- as this was 8 years after the

of James Paterson.

reform process was initiated and within 12 months of it going through Parliament under the previous government – this news was not happily received by the group who protested vigorously! I was very lucky that CRY Representative James Brown was prepared to take on this complicated brief as frustratingly I was unable to attend because of the very short notice given.

Premiership Rugby to offer CRY screening 26 October Rugby now lead the way in sport with their screening programme the expansion of which to all elite players over 16 last summer significantly increased the number that screening was offered to. Testing sessions took place at Aviva Premiership Rugby clubs as well as at England representative squad training sessions

20 delegates travelled from various parts of the South East to attend the day and groups were led by CRY Bereavement with over 600 players tested. This screening programme is

Supporters Margy Al Chalabi, Diana Bower, Caroline Gard,

consistent with policy recommended by the International Olympic

Barbara Holland, Stephanie Paterson, Diane Tolley (pictured)

Committee, the International Rugby Board, the American Heart

and myself.

Association and the European Society of Cardiology.

www.c-r-y.org.uk

CRY update • Issue 53 • 7


News

from the

Chief Executive

November Matt earned his silver in the men’s double scull; whilst Andrew’s medal came in an extremely close men’s pair final. For the 2010

9 November Professor

Roger

National

Director

Disease

and

a

meeting

Boyle, of

Heart

Stroke,

for

the

held Heart

Disease Advisory Group at the Department of Health inviting for the first time Professor Bill McKenna; Trudie Lobban of the Arrhythmia Alliance & myself to represent the Chapter 8 Board. This, as we had been

World Cup series Matt teamed up with Marcus Bateman to race

informed it would be in 2005 at

the men’s double scull, winning gold in Bled and Munich and

its inception, was discontinued

silver in Lucerne.

at the end of 2010. Professionals from all disciplines travelled from towns and cities around England and Wales to contribute to the debate on a number of pertinent cardiac issues.

Conclusion of CRY / Philips testmyheart tour 27-29 November The second CRY / Philips

Seminar for cardiac health professionals

testmyheart tour concluded

18 November

in

West

Ealing’s

massive

Representative

Waitrose store. CRY Patron

Attridge

Andy Scott braved the dreadful

represented CRY at a seminar

weather to support the final

for cardiac health professionals

day

CRY Rosemary

with

the

held by the National Heart

temperature hovering around -4oC! 286

and Lung Institute in London.

young people registered for

Attendees

from

a screening across this final

Cardiac Specialists to Cardiac

weekend, with 102 booking in

Nurses

for the free cardiac test on the

ranged

and

the

charities

SADS UK and CMA were also represented.

The

Sunday.

seminar

was designed to share best

For more details and pictures

practice

of the tour see 25-27.

and

to

discuss

ways to improve handling of those affected by inherited cardiovascular conditions as well as those who have had an ICD fitted. Rosemary was able to share her experiences on these issues and also tell them about CRY. They are aiming to publish a booklet with answers to all the questions people usually ask after they have been diagnosed. There were concerns about the support available to young people who have had surgery and Rosemary explained that CRY’s Surgery Supporters Network had been operating for 8 years and suggested CRY should be included in the booklet.

CRY Patrons Matt Wells and Andrew TriggsHodge MBE win silver medals at the 2010 World Rowing Championships in New Zealand Congratulations to Matt Wells and Andrew Triggs-Hodge MBE who both won silver medals at the 2010 World Rowing Championships in Karapiro, New Zealand.

8 • CRY update • Issue 53

www.c-r-y.org.uk


News

from the

Chief Executive

December John Barrowman becomes CRY Patron 2 December

CRY Patron John Barrowman asks for donations to CRY instead of opening night gifts 11 December

Photograph courtesy of www.johnbarrowman.com

Shortly after becoming a Patron John Barrowman confirmed his intention to help when he asked his fans to donate money to CRY instead of buying him gifts to celebrate his opening night in panto as Tom Reid - a huge fan of John Barrowman’s - died of

sudden

(including Gift Aid) was raised.

arrhythmic

death syndrome (SADS) in 2009, aged 19. One of the highlights of his adolescence

Aladdin. A wonderful response from his fans meant that £1,027.12

had

been

when he had met John at a

CRY office affected by snow The Arctic conditions that suddenly descended on the UK did not exclude

book signing.

this little corner of England

Halina and Antony, Tom’s

organisations we finally had

mum and dad, contacted John to explain what had happened to

to submit to the atrocious

Tom telling him that he had been out with friends when he began

travelling conditions and

to feel unwell, saying that his heart was beating very fast. Tom

for the very first time in

then collapsed and, despite the best efforts of the emergency

15 years perilous snow

services and hospital staff, could not be resuscitated.

and ice closed our office for 3.5 days during December. I would

After meeting with Halina and Antony, and sharing some of their memories of Tom, John very kindly offered his support to CRY and has become a Patron. John said “I’m pleased to offer my support to this truly worthy organisation. That so many healthy young people die from this silent syndrome is tragic. CRY is working hard to protect our young people with their programs for research and prevention. I’m glad to add my voice to CRY.”

and like so many other

like to thank the extraordinary efforts of our Office Manager Kerry Gray who on several occasions during this bleak period braved the treacherous pavements to walk 7 miles to the office and another 7 back to his home to ensure that the office was not at risk of flood, fire or icing up at this time – and who sent out regular bulletins to all staff updating them of the state of the roads in the vicinity. When it was possible for the first cars to take to the streets again Kerry ran a virtual shuttle collecting and taking home those staff who kept the office going on the days it was possible to travel. An outstanding effort from some very special members of CRY staff and most especially an inspirational contribution from our Office Manager.

www.c-r-y.org.uk

CRY update • Issue 53 • 9


Newsletter

from the

Deputy Chief Executive

Dr. Steven Cox CRY Deputy Chief Executive One of CRY’s great strengths as an organisation has always been that we are the sum of the achievements of each of our supporters at a local level. It is what CRY families do within their local communities for CRY that gives a collective voice to the tragedies that so many of you have experienced. Every year that CRY operates more families are contacting us for support. Last year over 250 families were in touch with CRY, the majority of whom did so within 12 months of their tragedy. We know there is so much more that the government could do. However, the fact that we do not receive government funding, and are therefore not dependent on it, means we can continue to build on the momentum that has been generated by all of you to bring about change. Raising awareness has never been more important. In 2010 an additional 900 people received the CRY e-newsletter with an additional 1,282 people receiving the CRY Update magazine. The total number of people receiving the update is now over 7,000. Our website continues to receive over 2,000 visitors a day, with three quarters of a million visits last year. The number of downloads of the David Walliams DVD doubled last year, with well over 30,000 to date. Importantly, we are also seeing significant increases in our Facebook and Twitter numbers. What we so often fail to mention is the impact CRY is having throughout the world with many countries looking to what we have achieved in the UK. In the case of screening, the Italians set the example of what can be done in sport. However, CRY has pushed this boundary showing that young sudden death is not just about athletes and that concentrating on sport alone is much too narrow a focus. When CRY was recently compared to other similarly sized charities and remit we were delighted to learn that considerably more pence in the pound goes directly to our aims than other organisations. Our resolute efforts to minimise unnecessary bureaucracy reflect how successful we have been in ensuring that the absolute maximum amount donated by our supporters is used for the maximum impact. The IT revolution demands constant attention to procedures and gives

of pounds in annual administrative costs but enabled our programme to expand threefold overnight. There are a number of important changes that will be taking place in 2011. Some will be IT based to facilitate CRY’s continued expansion without resorting to bigger offices. We have now reached the maximum number of staff at the industrial unit where we are based, and moving office will not only be a huge challenge but also a risk at this time of austerity! IT is essential now to simplify some of our procedures for CRY families fundraising. For the last 10 years CRY has requested that 25% of donations made to ringfenced funds supports CRY core funding by helping to raise awareness and to fund the bereavement support CRY offers to families. We will now be abolishing this 25% deduction on donations to ringfenced funds and balancing the costs for those that want to use theirs for screening by charging £35 for every person tested. We are also widening the scope for ringfencing funds for “other initiatives” which may be specific research projects, machinery required for the advancement of the services we offer or susbsidising referrals to the CRY Centre for Cardiac Pathology. Much can be simply and more persuasively conveyed via video, and of course printing and posting a DVD is considerably cheaper than investing in booklets. We have recently launched a DVD, instigated by Gareth Mallon of the East Midlands Ambulance service and funded in memory of Charlie Morettes. The DVD is specifically for the ambulance service covering pertinent questions families or services providers need to know the answers to. Professor Sharma also talks in depth about each of the heart conditions that we deal with in our office on a daily basis. There is a specific section looking at ECG patterns. This is for medics interested in inherited cardiovascular conditions alerting them to what to look for on ECGs. In this Update we are including a “medical information” DVD similar to the ambulance DVD. If you could help circulate this to local GPs and, cardiac nurses it would be greatly appreciated and if you would like a copy of our ambulance DVD for your local ambulance staff just let us know. Thank you for your continued support. Best wishes,

us the opportunity to offer both a speedy response to situations (i.e. our recent coroners campaign) and efficiency. When CRY moved the booking of our screening programme online we not only saved tens of thousands Steve Cox Deputy Chief Executive

10 • CRY update • Issue 53

www.c-r-y.org.uk


CRY Between September and December 2010, CRY screened over 2,500 people with the CRY / Philips testmyheart Tour being the majority of these. Over 200 people were screened at 2 family memorial screenings. These were held in memory of Lewis Marsh (Sandhurst Town Boys & Girls Football Club) and Andrew Parr (Myerscough College). Sports screenings included GB Rowing, Canoeing, England Rugby Sevens, England Women’s Cricket, GB Sailing, Under 16’s & Under 17’s Cricket, Brighton & Hove FC, Premiership Rugby, England Rugby Under 18’s, Man City FC, Sale Rugby, UK Athletics, Under 19’s England Cricket, GB Triathlon, SKY Cycling, EIS sports clinics, GB Trampolining and Binfield FC. Nearly 400 athletes were screened.

Screening report

2 schools held screenings: Harwich School (Essex) and Colne School (Essex). In total, 167 were screened at these events. At our regular CRY clinics, 95 were screened at the clinic in the University of Glamorgan, funded by monies raised in memory of Mark Stephen Young. At the second ICAP clinic, where those born in 1995 in the south east are able to get free screening, 49 youngsters were screened. These screenings are held at the CRY Centre for Inherited Cardiac Conditions and Sports Cardiology in St. George’s Hospital. The CRY / Philips testmyheart Tour screened just over 1,700 young people across 9 locations.

What happens at a screening? The basic test is an electrocardiogram (ECG) which is a simple non-invasive and painless test that examines the electrical activity within the heart. The ECG involves lying down quietly and it only takes 5-10 minutes. Small stickers are placed at strategic points on the chest, arms and legs. Flexible leads (known as electrodes) that extend from the ECG machine are then attached to these stickers. The electrical rhythm of the heart is recorded and printed out. This part of the process only takes 2-3 minutes to perform. The ECG printout is then reviewed by a doctor in conjunction with a personal and family history questionnaire. If a more detailed image is needed (about 5% – 10% of individuals), an echocardiogram (ECHO) can be taken – this is similar to the ultrasound scan that is used for a pregnant woman to check the health of her baby. Soundwaves echo against various parts of the heart and they are recorded on a screen. This provides a detailed picture of the heart’s structure and how well it is functioning. This takes about 30 minutes to perform. CRY uses top of the range machinery donated by Philips for the screening programme. The screening programme is under the aegis of Professor Sanjay Sharma.

Other

CRY News

Thank you to everyone who took part in fundraising in 2010. If you

Christmas cards proved to be

currently have any CRY fundraising items – buckets, tablecloths,

the most popular ever, with

sashes, etc – which you no longer require, please can these be

stocks of several of our new

returned to CRY as soon as possible. We are particularly low on

designs having to be re-ordered

tablecloths at the moment! CRY will pay for the postage cost of

to cater to demand! For the

returning items, so please contact us ASAP (call 01737 363222

first time, cards were available

or email cry@c-r-y.org.uk) if you would like to return any items –

to purchase online either via

including unused literature, or merchandise provided on a sale-or-

eBay or through CRY’s online

return basis. Many thanks.

shop. A small merchandise

We hope you enjoyed the Christmas chosen

cards

this

that

year.

selection

may

still

of be

purchased online at www.freewebstore.org/cry-online-shop.

were

Special

thanks to CRY Representatives

CRY is delighted to report that Calor UK has contributed a total of £33,790.26 to CRY in year 1 of its support.

Rosemary Attridge and Katy Turberville for the time they

The money was raised through a range of staff activities and

gave us in helping with this

sponsorship of events, including sponsorship of the 2009 CRY

surprisingly challenging task.

Parliamentary Reception;a Calor team taking part in the Royal Parks

This year’s selection of CRY

Half Marathon 2009 and the BUPA 10k 2010; dress down days;

www.c-r-y.org.uk

CRY update • Issue 53 • 11


Other

CRY News 15 years. With the enormous support of people across the UK including family and friends who are affected by these tragic and undiagnosed heart conditions, MPs, our Patrons and leading medical experts in the field - we have made a real impact as we strive to raise awareness of sudden cardiac death.” “Our aim is to continue to support those who are adversely affected by the condition, as well as campaigning for wider screening to help save the lives of young people in the future. We are very grateful to Calor Gas for its fantastic support which will enable us to continue our valuable work.”

Left to right: Stephen Rennie, Stevie Rennie, CRY Patron Phil Packer, Holly Sims, CRY Patron Roger Taylor, Sharanjeet Kandola, Gemma Banks, Paul Blacklock and Lee-Anna Rennie

Over the course of 2010 our supporters raised £313.28 (including Gift Aid) via eBay for Charity. If you would like to raise funds in this way see

barbecues; golf days; a laptop donation initiative; book sales and

www.c-r-y.org.uk/ebay_for_charity.htm

Calor’s 75th anniversary celebrations.

for more details.

Managing Director of Calor UK, Stephen Rennie comments: “Young

During

sudden cardiac death is more prevalent than most people realise, and

supporters raised £150.48

yet in most cases, with identification and the appropriate treatment,

by shopping and searching

these tragic young deaths could be preventable. Therefore I am very

with

proud that Calor is working with CRY in order to help fund this life-

easysearch. The majority of

saving work.”

this was raised through online

2010,

CRY

easyfundraising

and

shopping via CRY’s easyfundraising link www.easyfundraising.org. “The £33,790 donated by Calor over the last 12 months is just the

uk/causes/cry/. If you already shop online, why not help CRY at no

beginning - we have pledged to raise £100,000 for CRY, and Calor

extra cost from purchases you would make anyway. Just register

staff will continue to do whatever we can - from dress down days and

on the site to start raising money for CRY as you shop.

sponsored events to our cylinder retrieval scheme Gift of the Gas - to reach this ambitious target.”

By using easysearch every time you search the web CRY receives 50% of the fees paid by advertising sponsors. Just use the link

Founder and Chief Executive of CRY, Alison Cox MBE, comments:

http://cry.easysearch.org.uk/ every time you search the web.

“We are incredibly proud of all that we have achieved over the last

Report from the CRY

Centre for Cardiac Pathology

(CRY CCP)

By Jemma Wells, Dr. Mary Sheppard’s Medical Secretary at the CRY CCP. The CRY Centre for Cardiac Pathology received 64 sudden death cases during September to December 2010 giving an average of one heart examined every 2 days.

Dr Mary Sheppard Consultant Cardiac Pathologist

Jemma Wells Medical Secretary

12 • CRY update • Issue 53

Dr Sofia de Noronha Research Assistant

Saharnaz Vakhshouri Laboratory Technician

www.c-r-y.org.uk


Report from the CRY

Centre for Cardiac Pathology

(CRY CCP)

report to coroners and families. During these four months our average turnaround for producing this report was 8 days. We aim to provide this quick turnaround to reduce the suffering of families anxious to learn the cause of their tragedy. Dr Sheppard is available to discuss the diagnosis of the cause of death with family members and this can be arranged by contacting Maria, in the CRY office, on 01737 363222. We are now getting a number of spleen specimens obtained at post mortem which are sent to St George’s Hospital for genetic analysis. This will be done in collaboration with the new Biomedical Research Unit at the Royal Brompton Hospital.

2010 has seen an increase in the number of hearts examined from previous years as shown in the graph above. We believe this is due to greater awareness of sudden cardiac death and greater awareness of the service that Dr Sheppard provides at the Royal Brompton Hospital. Throughout 2010 we have advertised the service by sending flyers, particularly to coroner’s services in the UK, but also by word of mouth as Dr Sheppard travels around the country to meetings and informs families and pathologists of the CRY specialist referral centre. As shown in the pie chart below, there are a variety of causes of sudden cardiac deaths, this chart shows the diagnoses that were made during September – December 2010. The majority of our cases are sudden cardiac death with a structurally normal heart indicating most are due to electrical abnormalities. Once a diagnosis is made we provide a

Dr Sheppard and Research Fellow Dr Sofia de Noronha are undertaking a number of research projects from this work, including arrhythmogenic right ventricular cardiomyopathy (ARVC), sudden cardiac death and obesity, sudden cardiac death during emotional stress and mitral valve disease as well as analysis of the CRY Cardiac Pathology Centre service. Dr Sheppard published an original article on Sudden Death in Sarcoidosis in a European Medical Journal and also completed work on the second edition of her book on Cardiovascular Pathology which is due to be published in 2011. This is a leading textbook on this topic and has been possible with help from CRY. Dr Sheppard is actively involved in committees and steering groups for sudden cardiac death both nationally and internationally. Recently she became a member of the European Society of Cardiology (ESC) working group on developmental anatomy and pathology and has been elected as a councillor for the British Division of the International Academy of Pathology (BDIAP) and will be a member of the Meetings and Programmes committee. As an expert in her field Dr Sheppard is regularly invited to speak at a variety of conferences both nationally and internationally. Dr Sheppard has provided several teaching sessions for the BHF Genetic nurses this year at their request in the UK and has also lectured on the European and International stage, in Lisbon and Israel respectively, at cardiology meetings on sudden cardiac death. Alongside Dr Sheppard’s monthly teaching commitments at both North London and East England Deaneries and Imperial College London she has also been working on producing e-learning materials throughout the year with the Royal College of Pathologists on Cardiovascular Pathology. Dr Sheppard has an important role in inquests following a sudden cardiac death when she speaks to families explaining the cause of death.

www.c-r-y.org.uk

CRY update • Issue 53 • 13


BUPA Great North Run

2010

Congratulations and a huge “thank you” to all who took part in the BUPA Great North Run in aid of CRY on Sunday 19 September 2010. This year we had a team of 52 CRY runners amongst the thousands of participants - including CRY’s Communications Officer, Mair Shepherd. Everyone seemed to enjoy another fantastic race day despite the horrible weather and aches and pains - although at least the weather was more runner-friendly than last year’s blazing sunshine! It was a truly incredible atmosphere once again, at a unique event which we are pleased to be a part of. The pouring rain seemed to cool everyone down at the end but made for a shivery start to the race. Many of our runners struggled at the notorious incline at mile 10 of the course, but they kept on going to be greeted by the comforting sight of the sea at South Shields, which signified that the finish was near! It was wonderful to finally meet so many members of the CRY team as well as their supporters and cheerers at the finish area. This year CRY had a stand in the Bronze Charities marquee, which was

14 • CRY update • Issue 53

excellent for raising awareness as we branded the whole area that was allocated to us and had plenty of CRY information and literature for runners and spectators who were not familiar with the charity and wanted to find out more. Nearly all of our runners dropped in to see us, and it was lovely to hear that many of them had supported other team members and given an encouraging pat on the back or cheer if they saw another CRY runner on the course. James and John, our two heart costume runners, seemed to receive a huge amount of support, with extra loud cheers and encouraging high fives along their way. Thank you so much to all who came to meet us, despite feeling emotionally and physically exhausted. It was a challenging day for everyone, and especially difficult for those who were running in memory of a partner, family member or friend. For more details and pictures from the day visit www.c-r-y.org.uk/ gnr_2010.htm#runners and www.c-r-y.org.uk/gnr_2010_pics1.htm.

www.c-r-y.org.uk


BUPA Great North Run

www.c-r-y.org.uk

2010

CRY update • Issue 53 • 15


BUPA Great North Run

16 • CRY update • Issue 53

2010

www.c-r-y.org.uk


BUPA Great North Run

www.c-r-y.org.uk

2010

CRY update • Issue 53 • 17


BUPA Great North Run

2010

Well done and “thank you” to all the CRY runners in the 2010 BUPA Great North Run: Nicola Armstrong (ran in memory of Graeme Bell) Matthew Richard Atherton (ran in memory of Louise Worth) Robert Bainbridge (ran in memory of Christopher Bainbridge) Emma Louise Barr (ran in memory of Jon Shaw) Simon Dickson Barr (ran in memory of Jon Shaw) Graham Belfield (ran in memory of Chris Parr) Alana Louise Briggs (ran in memory of Allyn McCluskie) Peter Caulton (ran in memory of Kevin Wilson) David Ian Cope (ran in memory of Caroline Johnstone) Nicholas David James Cope (ran in memory of Caroline Johnstone)

Helen Critchlow (ran in memory of Chris Parr) Andrew Malcolm Dearsley (ran in memory of Nina Horndorf-Dearsley)

Rose Dolan (ran in memory of Jamie Simpson) Jonathan Dugan (ran in memory of Jon Shaw) Alison Claire Edwards (ran in memory of Andrew Murch) David Evans Kelly Jayne Gleadow (ran in memory of Graeme Bell) Catherine Greenwood (ran in memory of Chloe Leach) Helen Hannan (ran in memory of Mike Scott and Tom Reid) Ian Harnimon (ran in memory of David Keirl) John Harrison (ran in memory of Graham Harrison) Martin Harrison (ran in memory of Graham Harrison) Stephen James Harrison (ran in memory of Graham Harrison)

John Headlam (ran in memory of Graham Harrison)

Jenny Hurst (ran in memory of Chris Parr) Lucy Hurst (ran in memory of Chris Parr) Philippa Hurst (ran in memory of Chris Parr) Marc Keirl (ran in memory of David Keirl) Catherine Leigh (ran in memory of Mike Scott) David Leigh (ran in memory of Jonny Leigh) Gemma Louise McCutcheon Mark Samuel McCutcheon Shaun Middleton (ran in memory of Jon Shaw) John Paul Nixon Sinead O’Hare (ran in memory of Brendan O’Hare) Darren O’Rourke (ran in memory of Paul Leach) Jason Pascoe (ran in memory of Richard Wright) Oliver Paxman James Peacock (ran in memory of Graham Harrison) Anton Price (ran in memory of Jon Shaw) Michelle Anne Reid (ran in memory of Graeme Bell) Mark Robson Dave Rockett (ran in memory of Bruce Cousins) Mair Shepherd Alex Shepherdson (ran in memory of Graham Harrison) Ami Shepherdson (ran in memory of Graham Harrison) Mike Shepherdson (ran in memory of Graham Harrison) Dennis Tailor (ran in memory of Andrew Murch) Patricia Thornton (ran in memory of Stephen Gregory) Debbie Vincent (ran in memory of Graeme Bell and Dad) Thomas Wilson (ran in memory of Graham Harrison)

Special thanks to John Headlam and James Peacock for running in a CRY heart costume.

18 • CRY update • Issue 53

www.c-r-y.org.uk


CRY Awareness Week • Greta Bridges held a coffee morning and cake sale at her

Friday was another night in the Union - ‘Pumped’ - which went down really well also.

We had a stall throughout the week in the main Union area and volunteers on the stall every afternoon to speak to students.

Overall we raised £595.18 through bucket collecting, but most importantly we got to speak to loads of students to raise awareness of CRY all through the week.

I will be emailing all the sports clubs about the week and how much we raised with a link to the testmyheart website; and many of the sports presidents have taken it upon themselves to get their team mates to sign up, which is great!” Alexandria Hingley, Sports and Physical Activity Development Worker, UCLU

home, in memory of Laura Williams

• Frances Barnes held a coffee morning and bring and buy sale at her local parish church in Gillingham, Kent, in memory of her son Nicholas Barnes

• Sylvia Pezzack held a coffee morning, an afternoon tea with craft stalls and an evening concert in her village of Mousehole in memory of her daughter Debbie Rendle

• Sue Nelson held a music night with a raffle and auction in memory of Georgie Nelson

• Jan Fair launched CRY as the charity of the year at her workplace Sapphire Systems

• University College London held a series of events across the whole of Awareness Week:

“The week started off well with the Ergathon - we had 5 different clubs on the rowing machines for the whole 12 hours and got a lot of publicity for the rest of the week!

• Andy Smith held Sudbury Golf Club Society Day • Virginia Goodman held a ‘Nearly New’ clothes sale • Garry Parcell held a band night at Walsall Wood FC • Debbie Edgar held a bingo night and Halloween fancy dress party

• Halina and Antony Reid held a series of events across the whole of Awareness Week. The Reids lost their son Tom suddenly in September 2009, aged just 19:

Wednesday we had Sports Nite when everyone dressed in red and we had a sports quiz, which went down really well.

Thursday was the hangover lounge where we offered coffee and smoothies and a place to ‘chill out’. We signed up people to the CRY screenings in West Ealing using a laptop in the lounge. About 25 people signed up there and then and we spoke to loads more students about how important it is to be screened and how to sign up to a screening at home!

www.c-r-y.org.uk

CRY update • Issue 53 • 19


CRY Awareness Week

“Saturday 9th October: Halina, Antony, Natalie, Dan and Angela were in the Tesco store, Garforth with their awareness stand and stall with information leaflets and buckets. Much awareness was raised as the Yorkshire Evening Post article on 28th September helped local people be aware of what

we were doing; and the free East Leeds Weekly news also contributed to this! So many customers were already aware of us and what we were aiming for. We also managed to collect £377.84 (not bad for a day’s work!).

Monday 11th to Wednesday 13th October: Halina brought the stand and information and set them up at work (NSPCC, Regional Office, Leeds). Much awareness was raised

Friday 15th October: Our ‘Awareness Tour’ finished off at Sainsbury’s Store in Colton, Leeds - again with Natalie and Angela helping out. Further awareness was raised with lots of questions from customers who took away leaflets and information. £240.51 was raised! Whilst on the stand and getting very cold at around 6.30pm! - we were approached by a gentleman who asked if we wanted to do a bag-pack fundraiser on Christmas Eve at his M&S Food Store in Leeds City Centre. We snapped his hand off at this offer!!

amongst work colleagues and friends with many taking leaflets home. Staff donated £28.45.

Tuesday 12th October: Antony visited Alexandria Hingley in London. Alex works for the Students Union at University College London. A good discussion was held about possible future events that we could help out with. Antony handed out CRY leaflets to students outside the main campus steps.

20 • CRY update • Issue 53

So, our raising awareness week came to an amazing end with the promise of more awareness and much fundraising to be had over the forthcoming festive season!! All in all, a reallllllly tiring but brilliant week!!” Halina and Antony Reid.

www.c-r-y.org.uk


CRY

Durham Riverside Walk

We would like to say a huge thank you to the 70 participants (plus dogs in CRY t-shirts!) who took part in the first CRY Durham Riverside Walk on Saturday 9 October 2010. We held this new event to help mark CRY’s 15th anniversary and to

Following the River Wear, walkers were treated to a beautiful view

launch CRY Awareness Week (9th - 17th October).

of Durham Cathedral, which was shrouded by an atmospheric mist. The glorious autumnal colours of the trees lining the river bank

After a drizzly and damp start to the morning, the weather cleared and

provided a stunning backdrop for the walk.

started to warm up just in time for registration, which was held inside Durham Amateur Rowing Club. Participants had the opportunity for

After crossing Bath Bridge and breaking away from the river

a hot drink and a chat with each other whilst we waited for everyone

momentarily for a pretty detour, the 7km route looped back around

to arrive. CRY staff and photographer Doug Moody took details and

to finish at Durham Amateur Rowing Club, where each walker was

photographs for the local press.

welcomed back by CRY Representatives Kenny and Maralyn Bowen and presented with a certificate and 15th anniversary key-ring as a

The event gave CRY supporters from the North East a chance to

token of thanks from CRY.

meet each other and discuss why they had decided to join the walk. Many people who took part walked in memory of a young person

The rowing club kindly opened the bar and provided delicious

who they had tragically lost to young sudden cardiac death.

toasties and homemade cakes ready for the walkers’ return, which was a very welcome treat, and helped to ease a few sore feet and

Just before midday, CRY Fundraising Manager Rebecca Zouvani

blisters! The club was full of smiling faces, and everyone seemed to

made a short speech to thank everyone for coming and introduced

enjoy the day. We would love to see everyone again next year and

Jeff Morland, who made a very moving speech about his own

hope to see some new faces too.

experience, having supported CRY and campaigned for many years following the loss of his son Levon.

We are very grateful to the event sponsors; Durham Amateur Rowing Club for providing a great venue at a discount and delicious food;

Following the speeches everyone made their way outside the club to

and to Northumbrian Water and Tesco Extra, Dragonville for kindly

take part in a motivating and energetic warm up, led by Kirk Douglas,

donating water and chocolate bars.

CRY volunteer fitness instructor and personal trainer, who travelled all the way from London to support the event and get everyone ready

For

to walk!

www.c-r-y.org.uk/durham_walk_2010.htm.

www.c-r-y.org.uk

more

information

and

photos

from

the

day

visit

CRY update • Issue 53 • 21


CRY

Durham Riverside Walk

Thank you to the following volunteers for all their help before, during and after the event by organising and attending meetings; promoting; driving; taking deliveries; pre-event telephone calls and emails; marshalling; designing and marking out the route; registering walkers; inflating balloons; handing out water, chocolate bars, certificates and forms and clearing up. We really couldn’t run a new event like this, so far from our office, without the help of dedicated volunteers: Kenny and Maralyn Bowen; David (Joe) Crow; Jack Doyle; Bruce Lowes; Aran Morland; Jeff Morland; Steve Percival; Sue Phillips; Nick Phillips and Ted Philo.

Photos courtesy of Doug Moody

We really appreciated the time and help of all of the volunteers. Special thanks to Jeff and Steve for making it all happen.

22 • CRY update • Issue 53

www.c-r-y.org.uk


CRY

Parliamentary Reception 2010

On Wednesday 13 October CRY held its annual Parliamentary Reception at Westminster. The event was hosted by Roger Gale MP, Dr John Pugh MP and The Rt. Hon. George Howarth MP and was the key event in CRY’s Raising Awareness Week. With 2010 being CRY’s 15th anniversary year, we were particularly delighted to have new CRY Patron Pixie Lott as Guest of Honour at the event.

The evening received fantastic cross-party support, with around 40 MPs attending the event to show their support for CRY’s campaigning. We are very grateful to all those Parliamentarians who found the time to attend. Other guests at the event were CRY supporters / families; CRY Surgery Supporters Network members; CRY Patrons Ben Brown, Simon Halliday and Roger Taylor MBE; representatives from corporate supporters Calor Gas; medical professionals; representatives from sporting organisations; CRY Trustees; CRY Research Fellows; CRY staff – and many others.

www.c-r-y.org.uk

CRY update • Issue 53 • 23


CRY

Parliamentary Reception 2010

There were a number of speakers at the event - MC for the evening, Dr Julian Lewis MP (standing in for Roger Gale MP who was unwell); The Minister of State for Health, Simon Burns MP; CRY Consultant Cardiologist, Professor Sanjay Sharma; CRY Chief Executive, Alison Cox MBE; and CRY Surgery Supporters Network member, James Bailey. During her speech, Alison Cox

presented Dr Julian Lewis MP with a painting of Westminster by artist John Bennett in memory of his daughter Laura who died suddenly aged 13 in her English class to thank him for his tremendous support of CRY over the years. As well as summarising CRY’s achievements and growth over the 15 years of the charity’s existence, speakers also talked about some of CRY’s current and future initiatives. One important announcement was the imminent release of a CRY medical information DVD. This project was instigated by Gareth Mallon

24 • CRY update • Issue 53

of the East Midlands Ambulance Service for distribution to Ambulance crews in his region; but the DVD will also be made available free to medical professionals throughout the UK. Following the speeches, guests were treated to a surprise acoustic set by CRY Patron and Guest of Honour, Pixie Lott. Pixie sang three numbers to a very appreciative audience, before posing for photos with many of the guests. Pixie’s appearance at Westminster was also filmed for CBBC’s Newsround programme; with young guest Tom Phillips acting as interviewer for the piece. The Reception received overwhelming positive feedback from those who attended, and it was a compelling reminder of CRY’s various initiatives, and the importance of CRY’s work. Visit www.c-r-y.org.uk/ CRY_parliamentary_ reception_2010.htm for a video and photos from the event.

www.c-r-y.org.uk


CRY /

Philips testmyheart Tour 2010

Following the success of the CRY / Philips testmyheart Tour 2009, a further tour travelled the length of England offering free heart screening to anyone aged 14 to 35. The tour was made possible through the fundraising efforts of

Andrew Parr, who died of SDS aged 21. The specially built mobile

families whose lives have been affected by sudden death syndrome

unit was situated in the car park of Morrisons supermarket. As well

(SDS) or sudden cardiac death (SCD), corporate sponsors Calor

as articles in regional press, BBC North West Tonight interviewed

Gas Ltd. and health and well-being company Philips. The tour visited

Ruth Lowe (Andrew’s mum) and Julia Smith for its news programme

9 destinations in England and tested just over 1,700 young people’s

and BBC Radio Lancashire interviewed Ruth Lowe for its news

hearts to detect any abnormalities that could lead to sudden death

programmes.

syndrome. Testing took place in a mobile unit, donated by Philips, consisting of four rooms and a waiting area. State of the art Philips’ ECG and ECHO equipment was donated for the tests. The CRY screening team, including doctors, were present at all locations throughout the tour and every person screened was seen by the doctor in the consulting room before leaving.

1-3 October Atherton, Tesco Atherton The screening in Atherton, Lancashire was held in memory of local resident Daniel Young, who died suddenly from an undiagnosed heart condition aged 16. The specially built mobile unit was situated in the car park of Tesco supermarket. Both before and after the event there were articles in the regional press to help raise awareness.

18-20 September Durham, Tesco Extra The tour kicked off in Durham, with the first screening held in memory of Levon Morland. The specially built mobile unit was situated in the car park of Tesco supermarket, Dragonville. Media coverage in the run up to the event included articles in four regional newspapers.

Dionne Young raising awareness

9-11 October Handforth, Tesco The screening in Handforth was held in memory of David Harrop who died suddenly, whilst playing rugby, from an undiagnosed heart condition aged 31.The specially built mobile unit was situated in the car park of Tesco supermarket. As well as articles in the regional press, the Daily Mirror featured an article on Jenny Harrop (David’s wife) and her

25-27 September Preston, Morrisons

experience. Andy Sheridan and Jay Thomas (Sale Sharks and England Rugby Players) also visited the mobile unit to get their hearts checked.

The screening in Preston was held in memory of local resident

CRY Research Fellow Dr Sabiha Gati with Sale Sharks Rugby Player Jay Thomas

www.c-r-y.org.uk

CRY update • Issue 53 • 25


CRY /

Philips testmyheart Tour 2010

25-27 October Leamington Spa, Sainsburys

6-8 November Welwyn Garden City, Panshanger Golf Complex The screening in Welwyn Garden City was held in memory of local resident Mathew Blease who died suddenly from viral myocarditis aged 13. The specially built mobile unit was situated in the car park of Panshanger Golf Complex. Regional media featured several articles prior to the event.

Chris White MP being filmed by ITV The screening in Leamington Spa was funded by the Calor/CRY partnership. The specially built mobile unit was situated in the car park of Sainsburys supermarket. As well as several articles in the regional press, ITV Central News stopped by to film a young person being screened. Chris White, MP for Warwick and Leamington, also visited the mobile unit and, along with Dr Steve Cox, was interviewed by ITV. Chris Murphy from Luton football club also visited the mobile unit to get his heart checked. Holly Sims and David Ilnicky from Calor came along to support the event.

30 October – 1 November Oxford, Tesco The screening in Oxford was held in memory of Sebastian English who died suddenly, whilst playing rugby, from ARVC aged 15 just as his father had done a decade earlier. The specially built mobile unit was situated in the car park of Tesco supermarket. BBC Oxford sent both a TV and radio crew, with Dr Steve Cox being interviewed for the radio.

Welwyn Garden City Ladies Youth FC in memory of Mathew

“I went to the Welwyn Garden City heart screening. And thanks to CRY, and the family who so kindly fundraised for the screening in memory of their son Mathew. I found out I have a small hole in my heart, called atrial septal defect. At the moment I have no symptoms so would never have known. Feel very grateful that I had the opportunity to pop along and get checked out. Keep up the good work!” Emma Surry. 20-22 November Sidcup, Co-operative The screening in Sidcup was held in memory of local resident Adam Donnelly who died suddenly from Brugada syndrome aged 17. The specially built mobile unit was situated in the car park of the Co-operative supermarket. Regional press featured articles to help promote the event.

ECG Physiologist performing an ECG

26 • CRY update • Issue 53

Co-op CSA Dan Furlonger, Jed Donnelly, Sian Donnelly, Julie Donnelly & Co-op Duty Manager Dan Ridson

www.c-r-y.org.uk


CRY /

Philips testmyheart Tour 2010

27-29 November West Ealing, Waitrose The tour finished in West Ealing with a screening held in memory of Tom Clabburn who died suddenly from SDS, aged 14. The specially built mobile unit was situated in the car park of Waitrose supermarket. The regional press as well as Brentford FC’s match programme promoted the event. Andy Scott, Brentford FC Manager and CRY Patron, visited the mobile unit and was joined by Gareth Coates and Paul Sharpe of Middlesex County FA. Andy became a patron after CRY’s cardiologist Professor Sanjay Sharma diagnosed cardiomyopathy and advised him to stop playing football when Andy sought advice having felt unwell during a match. CRY Patron Andy Scott, Alison Cox and Tom’s Dad Paul Clabburn

recently with the death of my Grandad who I was very close to. I then decided I need to live life at its fullest and if there was an opportunity to rule out things that could prevent this I was going to take it and so made my trip up from Brighton. The unit itself consists of a waiting room, 2 screening rooms and the doctors’ room where you will receive your results. There’s a handful of staff who will measure your height and weight before Adam Kane (second from left) with his band

“Since my early teens the idea of young people dying in their sleep had dumbfounded me as it was never something I’d associate with people my own age. It seemed such an unnatural thing to happen and being young it was the kind of idea I’d tend to brush off and put to the back of my mind. However when I was 15 a young girl, that I had previously shared a paper round with, in my village died suddenly in her sleep. It was when something happened this close to home that I realised how real this problem was. Since then 2 more young people I knew also died from sudden death syndrome. So forward on 9 years and I found myself at one of the CRY mobile screening events in West Ealing, London. The reason for the delay was probably borne out of the attitude that I didn’t really want to know if there was a problem, but an attitude that had changed

www.c-r-y.org.uk

you enter one of the screening rooms for your ECG which is a test to measure the electrical activity of the heart, the test is quick and painless and is over in less than 10 minutes. After my test I felt tense and nervous awaiting the results, but the staff were welcoming and friendly and there is plenty of information and support at hand for you should you require it. Following a short wait I saw the doctor who asked me a couple of questions about my general health (usually things you will have written on your health questionnaire once you’ve booked your screening) and told me that my scan was fine and so was my heart which was a massive relief. For some people however results might not be so positive, but CRY can provide you with the help that’s needed and that is why it is so important that people are aware of the great work that the CRY organisation does, and get themselves to one of the mobile screening events held round the country.” Adam Kane

CRY update • Issue 53 • 27


Premiership Rugby

Screening Launch

On 26 October, at Twyford Avenue (the training base for London Wasps), a screening programme for all elite rugby union players in England above the age of 16 was announced. the welfare of our players. Cardiac conditions in fit young men are extremely rare but, by testing all the elite players in England, we can identify any individuals at risk and offer advice, treatment and counselling.” Dr Steve Cox from CRY said, “This important initiative will not only identify those elite rugby players potentially at risk but it will also send a powerful message out to the community about the importance of cardiac screening in all young people. CRY’s screening service is available to those between the ages of 14 and 35.

All Aviva Premiership players, Regional Academy players above the age of 16 and England representative team players down to Under 16 level, will be offered testing for cardiac abnormalities. Although CRY had been providing a limited screening programme to England representative players since 2004, the expansion of the programme to all elite players over the age of 16 very significantly increases the number of players that screening can be offered to. Testing sessions have taken place at each of the 12 Aviva Premiership Rugby clubs over the summer, as well as at England representative squad training sessions with 607 players tested to date.

“Any person wanting these tests can visit the CRY website to book an appointment, and they will have the same service as these professional rugby players.” Dr. Simon Kemp, Head of Sports Medicine at the Rugby Football Union said, “This is another good example of implementation of key injury risk and illness policy across the elite game that was initially recommended by the Professional Game Board Medical Advisory Group. Premiership Rugby, the Rugby Football Union and the Rugby Players’ Association agreed with the group’s recommendation to mitigate the risk of sudden cardiac death across the elite game, supported the policy paper and implemented the policy very successfully this pre-season.”

The session at Twyford Avenue was the second of two sessions designed to sweep up any players who have been unable to attend any of the other pre-season screening sessions to date.

One of the players being tested at the Twyford Avenue session was London Wasps second row Richard Birkett, who added, “We are very well looked after by the medical staff at London Wasps, but cardiac screening is not something as a squad that we have done before.”

For players over the age of 20, this will be the only occasion on which they will be tested (unless they subsequently develop symptoms suggestive of cardiac disease). However, younger players will be tested every two years until the age of 20 as the heart can continue to grow until that age.

“It makes absolute sense to get checked out. Abnormalities are rare, but I would far rather have more tests and get a problem addressed, than I would have it go undetected with potentially serious consequences.”

Although the detailed results of the tests are subject to patient-doctor confidentiality, 45 of those players screened had echocardiograms and 12 have been referred for further tests as a result of the screening. No players have been advised to stop playing to date. The screening programme is consistent with policy recommended by the International Olympic Committee, the International Rugby Board, the American Heart Association and the European Society of Cardiology. Corin Palmer, Head of Academies and Development at Premiership Rugby said, “We are continually looking at ways of safeguarding

28 • CRY update • Issue 53

“I am delighted to hear the news that all Premiership and Academy players will be screened by CRY. There has been a growing relationship between CRY and the game of Rugby over the years and I hope that this development will eventually lead to all young rugby players in the UK being screened. The great thing here is that the profile and awareness of the charity will be massively increased by this news. Our ambitions remain for all young people in this country to be screened for potential unforeseen cardiac problems. This is a major step along the way.” Simon Halliday, CRY Patron

www.c-r-y.org.uk


myheart News

My Kilimanjaro Tony Eames was hoping to climb Kilimanjaro to raise awareness of long QT syndrome which he suffers from. However, his cardiologist advised against it. Unfazed by this, Tony found an alternative challenge walking for 13 hours and nearly 40 miles to raise awareness and funds. Tony says “I am the lucky one who had in excess of 2,000 attacks but survived to tell the story and can help raise funds for CRY. Following the diagnosis of long QT syndrome my life has dramatically changed (not just with my pacemaker); it makes me realise how lucky I am to be able to do this type of activity.” Tony and his sister Rachel Bellon took part in the 60km Just Walk challenge across the South Downs on 15 May. This is Rachel’s account: My brother has been in contact with CRY for some years now as

Just before 20km the 40km walkers turned off the path and just

he was diagnosed with long QT syndrome at 12 years old. He is

us hardy 60km walkers were left. Passing through Arundel and

now 30 and on his 3rd pacemaker. Earlier this year I was looking

Amberley the scenery was stunning and we could really begin to

for fundraising events when I came across Just Walk 2010. On a

appreciate the beauty of the South Downs Way. Still going strong

Saturday afternoon over a few pints in a pub with Antony and friends,

with a bounce in our step (thanks to compeed!!) we reached the

I suggested we do the walk as a brother/sister bonding experience

36km station, where the medic’s onsite pulled some walkers out of

‘Well we can’t do the 10 or 20km as they’re family walks and no-one

the walk. After a quick drink we tackled Bignor Hill, which seemed

will sponsor us, if we do the 40km we may as well do the 60km!’

to go on forever, the promise of a hot meal at the top keeping everyone going!

At first he seemed to think the walk would be easy, so he decided to ask his cardiologists if he could do Mt. Kilimanjaro instead, the simple

It wasn’t until we had only 8km left did the pain really start to set in

answer was NO. So he settled for my ‘easy’ walk and we signed up.

and our energy and cheery banter faded and the finish line seemed

Only when we started our weekend training did we realise the full

to get further and further away! Armed with head torches we finally

extent of what we were undertaking!! I had imagined 10km walk,

finished at 9:50pm, running over the finish line to rapturous applause

cup of tea, another 10km, another cup of tea. In actual fact, there

from the stewards awaiting our return!

were 8 power stations along the way giving us tea and refreshments; however the reality of the time and pain was something we hadn’t

Many families aren’t as fortunate as us and have to raise money in

prepared for.

memory of someone, I’m one of the lucky ones and Antony is an inspiration to everyone, proving that if diagnosed you can live life to

We arrived at Goodwood racecourse at 7am and were treated to a

the full with long QT. Between us, we’ve raised approximately £2,000

bacon buttie and cup of tea before the walk officially started at 8am

for CRY which is fantastic.

with lots of enthusiasm from the fellow walkers around us.

30 • CRY update • Issue 53

www.c-r-y.org.uk


Our In Memory of Philip Abraham “I am writing to you as a pupil of King’s School. We as a tutor group have raised money for your charity and are donating £500. As a tutor group we were given the challenge to raise as much money as possible for a charity of our choice. We chose to donate to CRY because a member of our tutor group, Leona Taylor, and her family knew Philip well. His unexpected death inspired Leona to suggest your charity to us as the beneficiary of our choice. We looked at your charity and were really encouraged to do as much as we could to help the cause. We raised funds in many ways including: an Easter raffle, car boot sales and a sponsored beard grow by our teacher. Every tutor group chose a different charity and raised money in different ways. Members of staff assessed each tutor group’s efforts and chose a winner. I am proud to say that our tutor group won and earned more money for CRY. On top of the money we raised, the majority of the prize money was also donated to your charity. We hope that this money will help you to save lives and support those who have already lost loved ones.” Madeleine Hobbs, Tutee 11 MTT, Kings School, Winchester. In Memory of Peter Aliferis “I am enclosing a cheque for £100 which friends, neighbours and passers-by have given to me as donations in exchange for plants. The donation is in memory of my son, Peter Aliferis, who died suddenly last December.” Judy McEllin.

Fundraisers

Left to right: Allan Davies, Tyron Goldsworthy and Matthew

• Allan Murray, AAA Insurance & Reinsurance Ltd., made a donation of £250.

• James Brewins and his work colleagues at Alesco grew moustaches and sent in a donation of £4,270.

• Pauline and Mike Allan, Carl and Nick Dixon, and Alastair,

Laura, Mandy, Suzy and Tom Ghaleb took part in the CRY Heart of London Bridges Walk 2010 and raised a further £100 through online fundraising making a total raised of £611.

• Liam Blackman and a friend rowed from Oxford to Guildford

In Memory of Jessica Allan Faye Simpson raised a final amount of £203, through online fundraising, in memory of Jessica Allan. In Memory of Robert Allan • Pauline Allan forwarded a donation of £100 in respect of sponsorship for her eldest son taking part in the London to Paris Bike Ride in July.

• Tyron Goldsworthy raised £1,345, through online fundraising, in respect of the London to Paris Bike Ride.

• Matthew Allan raised £1,390, through online fundraising, in respect of the London to Paris Bike Ride.

“I have attached a photo taken of 3 members of our family who rode London to Paris in July 2010 on their bikes in aid of CRY and in memory of our dear son Robert Allan. Robert died in his sleep at the age of 22 on March 22nd this year. Since that day family and friends have been planning events to raise money for CRY. They all rode magnificently, cheered on by family and friends. Allan Davies was too late to enrol on the organised bike ride so he set off on his own and his own route. He is 64 but arrived in Paris in 4 days. They have raised approx. £3000.” Jane and Mike Allan.

www.c-r-y.org.uk

in memory of Robert and raised £250. “We started out our row from Oxford town centre at about 10am on the Sunday morning, not really knowing what to expect. The first day, being one of our shortest days, we were filled with confidence as we were off the river and camp was set up by 6.30pm.

CRY update • Issue 53 • 31


Our

Fundraisers

A pub dinner and we were both asleep by 9pm. Great first day! The next 2 days, although a lot longer, were similar... beautiful sunshine all day long! When it got to Wednesday though, we managed to get caught out in the thunder and lightning with our tent draped over us as a makeshift splash deck. Luckily, after getting to our campsite we had some warm showers and were treated to a slap up meal by Lewis’ dad at the local Harvester. The next day the weather was looking up as we came through Reading and Windsor, finishing up in Chertsey where again Lewis’ parents were on hand with more food at our campsite! The final day, coming in a day earlier than we expected and probably our toughest day! We hit the River Wey, and after going down stream on the Thames the whole week we were now heading up stream. This proved very difficult, especially as it was a 22 mile stint to our finishing point in Guildford! Needless to say we made it there absolutely shattered and again Lewis’ parents were at our rescue with a lift home. All in all we managed 104 miles in 6 days, which we were very pleased with. Thank you very much to all those people who have sponsored us - it really made the trip that little bit easier to finish!” Liam Blackman & Lewis Sutehall.

In Memory of Marcus Armstrong • “Please find enclosed cheques totalling £1,690. This was raised by a local restaurant, named the Ship Restaurant, who organised a lobster supper and art auction in our son’s memory. Local artists donated a number of their own paintings which were auctioned for the memorial fund.” Tony and Jackie Armstrong.

• “The Mayflower Walk is an annual charity walk between

Harwich and Manningtree organised by the Rotary Club of Manningtree Stour Valley. 75% of the monies raised is forwarded by Manningtree Stour Valley Rotary Club to charities nominated by the walkers. The balance is allocated by Manningtree Stour Valley Rotary Club to charities it supports. The amount represents 75% of the monies raised by Richard Flatt and Karen Boreman.” Rtn. Paul Leech, Rotary Club of Manningtree Stour Valley sent in a donation of £111.

In Memory of Marcus Armstrong & Ross Crouch “Please find enclosed a cheque for £600. A memorial match was held at Brantham Athletic Football Club in memory of our beloved son Ross Crouch who was tragically killed in a road traffic accident in May 2008. It is our wish to donate the money raised at that match to CRY in memory of another dear friend, Marcus Armstrong, who died of YSCD.” Mrs Sharon Crouch. In Memory of Stuart Attridge • “A good friend of Stuart’s came round this morning with £790 in cash from a gig that his band ‘BIFTECK’ held at The Dog & Duck pub in Redhill on Saturday night in aid of CRY and in memory of his mate Stuart.” Rosemary Attridge.

• Georgina Bate and Philippa Craigie took part in the CRY Heart of London Bridges Walk 2010 and raised a further £330 through online fundraising making a total raised of £530. In Memory of Gideon Baws Tony Baws forwarded a donation of £100 from Jill.

In Memory of Graeme (Tinka) Bell • Gemma Cannell forwarded a donation of £600 from the 165 Club and the West Denton Fire Station Social Club.

• Debbie Vincent took part in the BUPA Great North Run 2010 and raised £275. In Memory of Kasia Ber Kasia’s Team took part in the CRY Durham Riverside Walk 2010 and raised £928. Kasia’s Team were Bhana Baker, Julie Bellerby, Peter Bellerby, Diane Ber, John Ber, Janet Brown, Claire Burlinson, Denise Dunn, Laura Dunn, Michael Dunn, Vicky Dunn, Nicole Kenny, Jeff Kinkade, Julie Kincade, Jill Lewis, Stacey Proudlock, Dawn Sanderson, Eloise Sanderson, Lisa Shanks and Jenna Wray.

32 • CRY update • Issue 53

www.c-r-y.org.uk


Our In Memory of Heather Louise Bilton-Cooper We have received donations of £1,279.65 in lieu of floral tributes, for the late Heather Louise Bilton-Cooper. In Memory of Mathew Blease • Karen Blease forwarded a donation of £2,701 from Tewin Hill Farm Limited. • Karen Blease, Stephen Blease, Josh Gough, Aaron Hemsley, Derek Twigg and Kim Twigg took part in the CRY Heart of London Bridges Walk 2010 and raised £290. In Memory of Simon Boakes Moira Boakes, James Holland and Peter Holland took part in the CRY Heart of London Bridges Walk 2010 and raised £240. In Memory of Jack Boulton • “Further to Steve Messam and myself completing the Derby Triathlon on 12 September, please find enclosed a cheque for £100 from Steve’s employer BAE Systems.” Ralph Knibbs.

• J u n e Boulton sent in an additional donation of £135 in respect of the Bath Half Marathon. To date this makes a total of £5,519.22 raised.

Fundraisers friends are Keynsham players. The day was organised by Derek and Lindsay Joyce. Alongside the cricket, refreshments were served and afterwards there was a fundraising auction and live music. When the weather took a turn for the worse the game was declared a draw.

Team captains Richard Wilton and Gary Worgan holding the trophy.

• 6th and 7th August 2010: Bristol Cider festival held at Temple Meads and organised by Chris Lilley collected their unused ‘chips’ for CRY in memory of Jack. This raised a total of £450.

• 18th September 2010: The annual golf competition held in memory of Jack at Saltford Golf Club, near Bath, raised £140 for CRY and a good day was had by all.

In Memory of Ian Bowen Neil and Karen Duffy took part in the BUPA Great North Run 2009 and raised £630.

In Memory of Sam Bradley Michael Waller took part in the London to Brighton Cycle Ride and raised £202 through online fundraising. In Memory of Wesley Bray David Warner held a charity golf day, on 29 July, in memory of Wesley and raised £200.

• The Keynsham U25’s

played the Celebrity XI in a charity cricket match. This was played in very good spirits and raised £2,000 in aid of CRY in memory of Jack. Jack was a very keen cricketer and many of his

www.c-r-y.org.uk

In Memory of Gregory Brookes “My wife and I were completely devastated in early October last year when a very, very close friend, Mr Gregory Brookes looked upon more as a son than a friend - died quite tragically and most suddenly at the age of just 30 years. In his memory, we recently held a memorial golf day to generate enough funds to establish a permanent memory to Greg on his favourite golf course here in Rothley, Leicestershire, in the shape of a memorial bench out on the course. So successful was the event that we were able to cover the full costs of the day, and had a surplus for donation to his

CRY update • Issue 53 • 33


Our

Fundraisers

preferred charities. Following much discussion his parents opted for a donation to CRY for its work with SADS victims’ families and loved-ones.” David & Hayley Liepins sent in a donation of £444.52. Friday 2nd of July saw the playing of a memorial golf event in memory of Gregory Brookes from Markfield, Leicestershire who died suddenly and tragically last October 7th of Sudden Arrythmic Death Syndrome - SADS ( or Sudden Adult Death Syndrome ). The death was widely publicised in the Leicester Mercury last year when it happened and raised awareness in many readers of the little understood condition which seems to affect mainly, but not exclusively, young and fit men between their late teens and early thirties. Greg was a very keen golfer and as such many of his close friends chose to commemorate his memory by the erecting of a memorial bench on his favourite and home course of Rothley Park Golf Club. It was decided the best way to raise the funds was to organise a golf competition and, so successful was it, that it saw over 100 golfers from all over the County of Leicestershire clamouring to take part and raise money not only for the memorial bench, but also the charities of the DLRAA (the Derbyshire, Leicestershire & Rutland Air Ambulance, CRY (Cardiac Risk in the Young) and one of Greg’s own favourites, the RNLI. The event organiser Mrs Hayley Liepins from Rothley Park Golf Club said, “we were just absolutely delighted that the Club allowed us to hold this event with such a tremendous turn-out and we were further delighted to have Mr Dennis and Mrs Judy Brookes, Greg’s parents, along with a couple of other family members serving all the players refreshments half way round the course.” She further added that due to the popularity of the event, and the extremely generous donations by many of the people who knew and loved Greg, “we have also been able to produce a superb trophy which the event winners will be able to keep for a year and have also donated a further trophy for one of the Golf Clubs’ under-35’s competitions which will keep Greg’s name forever alive in the Club”. Early signs show that each charity will receive around £500 from the event and, who knows, it could even become an annual event! In Memory of Alex Buckler Rosalind Buckler sent in donations totalling £314; £258 from the Ballards Bowmen Memorial 40th Archery shoot and £56 from the sale of farm kittens. In Memory of Nathan Butler • “Please find enclosed cheques to the value of £505, representing donations made instead of presents, to celebrate my 80th birthday in September. These donations were in memory of my grandson, Nathan Butler. No doubt this amount will assist you in the good work you are undertaking.” Arthur Butler.

• Jason Buckley raised £248 by taking part in the Potteries Half Marathon in memory of Nathan.

34 • CRY update • Issue 53

• “Please find enclosed a cheque for £500 for Nathan’s Fund.

This was donated via the Minerva Lodge of Freemasons from the Norah Mitchell Trust Fund. I attended the presentation last Friday to accept the cheque.” Angela Butler.

• “Please find enclosed cheques totalling £700. Nathan’s

dad, Phil, was 50 last week and held a fancy dress party on Saturday 4 December. Instead of presents he asked for donations to CRY and received the total amount of £700. Well done Phil!” Angela Butler. In Memory of James Byers Geraldine Byers raised £1,028, through online fundraising, in respect of her parachute jump.

In Memory of Jake Carney Karen Scroby took part in the Great Manchester Run and raised £1,358 through online fundraising. In Memory of Ben Carter “Please find enclosed a cheque for £150 which was recently raised by both donations from employees and the company following an inter-department five-a-side football match which we held in aid of Ben Carter, who sadly passed away at a young age and was the son of Glen Carter, an employee of Rolls-Royce DGS.” John Lawrenson, Rolls Royce. In Memory of Graham Lewis Cataldo Davies • Martyn Brabbins held Beethovenathon - a performance of all 9 Beethoven Symphonies at the South Bank Centre on 17 July and raised £4,250.

• Suzanne Cataldo raised £100 in memory of her son Graham. • Pupils and teachers of Wynstones School held a concert on 19 November in memory of Graham and sent in a donation of £400. “Graham was 16 years old and attending Wynstones School when he died of SADS on a morning jog on 18 April 2007.” Suzanne Cataldo.

In Memory of Olivia Chase Kathryn Ellinger raised £1,155, through online fundraising, in respect of the Brighton Marathon. In Memory of Anthony (Budgie) Child “We have great pleasure in sending you cheques for the sum of £575, raised at both a line dance party for our friends and a family event to mark our Ruby Wedding Anniversary. We decided to have no presents as at our stage of life we have enough stuff to fill several houses over, so came up with the idea of raising money for CRY. Our Ruby Wedding Anniversary was actually on the 31st October, whilst the party for our line dancing friends was on the 6th November. The evening was run by our very good friend Kim Ray of Bluegrass Line dance Club. We also had Natalie Thurlow

www.c-r-y.org.uk


Our perform for us, who sang all our favourite dances. All our very good line dancing friends joined us for a fabulous evening, to celebrate our 40 years together.

Fundraisers

In Memory of Jamie Clarke • Lucie Playford raised £3,164 in respect of the Great London Swim 2010.

• Helen Clarke sent in a donation of £265 in respect of her

team completing the Great London Swim. This makes a total raised of £3,429.

In Memory of Michelle Clarke Alan Reed raised a further £1,231, through online fundraising, in respect of the Belfast Marathon. In Memory of David Cochrane Lodge Hopetoun St. John No. 1232 did their Annual Sponsored Walk in May and raised £2,850.30. In Memory of Nathalie Grace Cocks We have received a donation of £485, in lieu of floral tributes, for the late Nathalie Grace Cocks. On the Sunday we had a tea party in our village hall for non line dance friends and family. Quite a hectic weekend but well worth it. Let’s hope we still have the same energy and enthusiasm on the 50th!!” Angie & Jack Child. In Memory of Tom Clabburn • Mike Scott took part in the CRY Heart of London Bridges Walk 2010 and raised £165 through online fundraising.

Mariita Eager forwarded a donation of £600.

• Linda and Gottfried Panzer took part in a Mountain Walk and raised a further £207.

In Memory of Bruce Cousins • Alan and Jackie Cousins sent in a donation of £141.39 raised at a summer car boot sale in memory of their son, Bruce.

• Dave Rockett took part in the BUPA Great North Run 2010 and raised £363. • Jackie Cousins sent in a donation of £106.84 in memory of her son Bruce.

In Memory of Samuel Crabb We have received a donation of £450, in lieu of floral tributes, for the late Mr Samuel Crabb.

• More than 85 members of Team Tom III took part in the CRY Heart of London Bridges Walk 2010 and raised a further £2,405 making a total raised of £3,380.

In Memory of Ben Crean • Amy Crean took part in the BUPA Great Manchester Run and raised £810 through online fundraising.

• More than £1,000 was raised for the Tom Clabburn memorial

• Toby Sandall took part in the BUPA Great Manchester Run

fund at CRY through a book and cake sale at the BBC in White City, west London.

Lots of colleagues (pictured below) helped Tom’s mum Claire Prosser sell the books which were new and nearly new - many donated by BBC programmes. There was also an auction of signed books. Tom, from Ealing, died at the age of 14 from an undiagnosed heart condition.

and raised £179 through online fundraising.

• Mark Thomas took part in the BUPA Great Manchester Run and raised £100 through online fundraising.

• David Tyson took part in the BUPA Great North Run 2009 and raised £270 through online fundraising.

• Jennie Crean held a casino fundraising night in memory of

her son, Ben. CRY Representative Ian Scanlan collected a donation of £1,500.

In Memory of Louise Cromwell John and Betty Clarke requested donations to CRY in lieu of presents at their recent 40th Wedding Anniversary. This donation of £540 was sent in by Joanne Abraham. In Memory of Hayley Crook Rod Crook has, to date, raised £8,115 through online fundraising.

www.c-r-y.org.uk

CRY update • Issue 53 • 35


Our

Fundraisers

In Memory of Simon Jon Cullum • Marilyn Cullum sent in two donations: £460 for sponsor money for the London Bridges Walk and £678.92 from various fundraising events, including a stall at the Gorleston Clifftop Gala, a bucket collection at Great Yarmouth race course and ticket money from a fashion show.

• Team The Daddy took part in the CRY Heart of London

Bridges Walk 2010 and raised a further £135 through online fundraising making a total raised of £595. Team The Daddy were Kelly Bates, Marilyn Cullum, Mrs Watts, Lynda Woods, Scott Woods and Denny. In Memory of Adam Dabell “The 7th Adam Dabell Annual Memorial Match was held on 7 October and was, once again, extremely well attended, particularly by the young people of the town.

The Sackville v Imberhorne ‘Old Boys’ match kicked off the evening with some very energetic and skilful football. I’m afraid I couldn’t tell you their final score but I wonder if they could either! I know that they thoroughly enjoyed playing each other on the East Grinstead Town FC pitch under floodlights and would have loved to have played for a full 90 minutes.

In Memory of Neil John Darby • Mrs Heather Darby donated £370, raised from a golf event and auction.

• “Please find enclosed cheques to the value of £503. This was raised by Tony Fox at his 50th Birthday Party, in memory of Neil. He asked for donations to CRY instead of presents.” Heather Darby.

In Memory of Mark Davies • We have received a donation of £1,082.30, in lieu of floral tributes, for the late Mr Mark Davies.

• “This donation was raised by subscription from the members

of ALEC in memory of Mark Davies, our friend and fellowmember, who died aged 47 of sudden adult death syndrome. He was a fit and active man who died in his sleep in July of this year. He leaves a wife, Sandy and two young daughters, Natali and Carys. He is sadly missed by all of us and we hope this donation will help your work in CRY.” Mrs Debbie Page (Treasurer), Aladebourne Light Entertainment Club (ALEC), sent in a donation of £200. In Memory of Paul Davies

The Sackville v Imberhorne 6th Form Match followed and these young people treated us to 90 minutes of excellent football. The Mayor and Mayoress attended and the Mayor presented the Cup and Trophy to the winning team, Imberhorne, who won a hard fought game 2 – 0. The goalscorers for Imberhorne were Harvey Weddell and Josh Allard. Cheque presentation for £450 from Waitrose Community Matters. Left to right Sharon Reznik Waitrose customer services/ community matters, CRY Representative Benita Davies, Joan Lee Bilston President, Amanda Waitrose customer services. In Memory of Carl Dawson Anne Adams took part in a skydive and raised £802 through online fundraising.

Dan Celani of Imberhorne said that both teams were, “A credit to your schools, parents and local community – well done”. In presenting the Cup to the winners and medals to all players, the Mayor said that there were no losers and that the teams had treated us all to some very fine quality football - although his daughter, who is now a sixth-former at Sackville, would be a little disappointed with the final result! Voluntary contributions on the night raised £300 for CRY.” John Dabell.

36 • CRY update • Issue 53

In Memory of Claire Dee Shapland Shirley Ellis, ServiceMaster Contract Services, sent in a donation of £3,015 raised from the auction and Charity Ball which was organised by Nick and Eve Dee Shapland. In Memory of Adam Donnelly • Julie Donnelly forwarded a donation of £3,860 which was raised at the third CRY Ball in memory of Adam on Saturday 18th September 2010. Included in this amount was a donation of £405 from Evergreen Packing Ltd.

• Toni Branch took part in the Run to the Beat - London’s Music Half Marathon on 26 September and raised £385.

www.c-r-y.org.uk


Our In Memory of Adam Drawbridge • Mrs E Drawbridge sent in a donation of £100 in memory of her grandson, Adam.

• “Please find enclosed a cheque for £150 as a donation in memory of my Great Nephew Adam.” Mrs K A Fleming. In Memory of Kevin Eaton Emma Eaton took part in the CRY Heart of London Bridges Walk 2010 and raised £130. In Memory of (Nia) Mair Edwards “Please find enclosed cheques to the value of £300. The money was raised at Alun’s 60th Birthday party. Mair died on 20th February 2004 from long QT syndrome. To those who knew her we will never forget her smile, she was a good daughter, sister, wife and mother.” Alun & Elerie Evans (parents). In Memory of Leslie Elkington Amanda Law took part in the CRY Durham Riverside Walk 2010 and raised £202.

Fundraisers

School completing a charity cycle tour from the Lizard Lighthouse to Duncansby Head Lighthouse.

• William Adams raised £647, through online fundraising, in respect of his team from the Lord Wandsworth School completing a Charity Cycle Tour from the Lizard Lighthouse to Duncansby Head Lighthouse.

• “This year we cycled from The Lizard

to John O’Groats, a distant of 1,009 miles. In doing so, the boys and staff raised a total of £2,945.26. The group consisted of 11 cyclists and a support crew member, although one cyclist broke his collar bone in York and had to go home early. The others cycled the whole route. Keep up the good work.” Richard Kimber, Lord Wandsworth College, Hants sent in a donation of £1,823.90.

• Phil & Wynee Owens sent in a donation of £100 in memory of their late Great Nephew, Sebastian.

In Memory of Jenny Finney &

Lieutenant Stanley James Finney

In Memory of David Elliot Kay Banks and Nicola Elliot took part in the CRY Durham Riverside Walk 2010 and raised just under £100.

In Memory of David Elliot & Rose Carr We have received a donation of £510, in lieu of floral tributes, for the late Rose Carr. “This was money kindly donated by family and friends in lieu of flowers on the death of my Mam, Rose Carr, who died on 3rd October 2010. Mam was very fond of David and as with all his family, were devastated when he died suddenly in 2002 aged only 34 years, leaving a wife and two small boys. I know Mam would have approved of this money being sent to CRY to help with your valuable work.” Eileen Elliot. In Memory of Sebastian English • Mark Tinker made a donation of £500.

• “The 6th Sebastian English Memorial Golf Day was held at Bamburgh Castle Golf Club on the stunning North East Coast, followed by a very jolly dinner. A total of £1,450 was raised, with the whole day being organised by Stephen Nicholson. The winner of the Sebastian English Green Jacket was Jonathan Brown.” Rupert Hunter.

We have received a donation of £160, in lieu of floral tributes, for the late Lieutenant Stanley James Finney (father-in-law of Jenny Finney). In Memory of Nolan Foley “Ann (Nolan’s mother) belongs to a local gym. The gym owners organised and hosted an event with entertainment and raffle to raise money for CRY. Ann was heavily involved with CRY promotional information and ticket and raffle support for the event.” David Foley sent in donations totalling £1,010. In Memory of Andy Forbes Tesco Stores Limited, Cheshunt, sent in a donation of £570.60 in memory of Andy. In Memory of Joanne Fotheringham • Alex Fotheringham forwarded a cheque for £18,016.96 which were donations accrued from various fundraising events.

• “The Ullapool Air Cadets look on as Sqn Ldr

Armitstead hands over a cheque for £800 to Mrs Alex

• “A friend of ours, Sally Heslop, was due to run the Kielder

Marathon a couple of weeks ago, but she got injured just beforehand. She was running for Sebastian and CRY and will do it next year.” Rupert Hunter sent in £292.10.

• Tommy Garland raised a further £370, through online

fundraising, in respect of his team from the Lord Wandsworth

www.c-r-y.org.uk

CRY update • Issue 53 • 37


Our

Fundraisers

Fotheringham for The Cardiac Risk in the Young (Joanne Fotheringham Memorial Fund). The Cadets raised this sum by taking part in this years Great Wilderness Challenge last August. Sponsorship by family and friends with additional support from the GWC organisers resulted in this impressive sum being donated to this very worthwhile charity. The Ullapool Unit has now raised over £18,000 in total, since it began participating in the GWC to raise money for CRY. Their target for next year is to clear the £20,000 hurdle, so your support will be welcomed and appreciated when they come round with the sponsorship forms.” Alex Scott, Adjutant 161 ( Ullapool ) D/F Air Training Corps. I n

Memory of Rhian Nadine Fry We have received donations amounting to £178.50, to date, in respect of the booklet which Rhian wrote on the history of her village of Maresfield.

In Memory of Daniel Furnell Chloe Griffiths sent in a donation of £195 in memory of Daniel Furnell, who died on 11 August 2010, aged 26 years.

In Memory of Susan Gomez Frances Gomez sent in donations totalling £400. In Memory of Alexander Goodman Rosemary Goodman held a coffee morning in November, in memory of her son Alexander, and raised £280. In Memory of Reece Goodman “Enclosed is a cheque for £2,000 in memory of our beautiful little boy, Reece Goodman, who tragically passed away suddenly 4 years ago at the age of 1 year and 1 week to a rare heart condition called cardiomyopathy. This was brought on suddenly by a virus, from contracting this illness Reece lived just 8 weeks. It was decided last Christmas that my work company Unipart were going to do a raffle across 3 Unipart sites at £5.00 per ticket with the chance of winning a car worth £1,000, the money that was raised was then split between 3 charities. Myself and my husband are extremely grateful for the generosity of the company and are truly thankful that we are able to hand over the cheque both in memory of Reece and in knowing that this money will go towards helping bereaved families, research, equipment and beyond.” Lara Goodman. In Memory of Stephen Gregory Patricia Thornton raised £455, through online fundraising, in respect of the British Gas Great London Swim.

In Memory of Mark Gallacher “Our son lost his best friend Mark Gallacher four years ago and since then we have followed CRY closely and support you in all you do. Last week I took part in the Great Scottish Half Marathon and raised £105 for CRY, which I enclose.” Jacky Ralston.

In Memory of Rochelle Grogan Rochelle’s Rubies took part in the CRY Heart of London Bridges Walk 2010 and raised a further £285 through online fundraising making a total raised of £1,722. Rochelle’s Rubies were Sophie Grogan, Charlotte Ithier, Michaela Thorpe, Mick Thorpe and Sharon Thorpe.

Memory of Lauren Gallagher Blanche Gallagher sent in a donation of £122.13 from the collection box held at Centra Stores, Ballymagorry, Strabane.

In Memory of Phil Gunn Steve Readdie raised a total of £1,880, through online fundraising, in respect of the Mont Blanc Climb in memory of his friend, police officer, Phil Gunn.

I n

In Memory of Lyndsey Galligan-McLoughlin James Galligan sent in a donation of £100 in memory of his daughter, Lyndsey. In Memory of Aimee Garnett Madison Haigh took part in a tandem skydive and raised £120. In Memory of Stephen Gately Steo’s Superfanz took part in the CRY Heart of London Bridges Walk 2010 and raised a further £590 through online fundraising making a total raised of £1,079.50. Steo’s Superfanz were Jan Austin, Olaf Bitter, Victoria Blunden, Sheryl Chappell, Gemma Charville, Karen Halliday, Lenie Keizer, Jacqui King, Heidi Lee, Catherine Mostyn-Scott, Ivan Mostyn-Scott, Sarah Phillips and Silvia Wunsch.

38 • CRY update • Issue 53

In Memory of Leanne Haddrell • “Please find enclosed various cheques to the value of £935 which has been raised as sponsorship for a bike ride from Trefforest, South Wales, to Tewkesbury, Gloucester. This bike ride was in memory of our friend, Leanne Haddrell, who died of myocarditis in May 2008.” Amy Young and James Padden.

• Alex Padden raised £420, through online fundraising, in respect of the Tewkesbury to Trefforest Cycle Ride.

In Memory of James Haggerty • “On Sunday 13 June nine of us undertook a sponsored 7 mile walk with the Rotary Club of Bexhill to raise funds for charity. Anyone could take part and raised funds for the charity of their choice, we obviously chose CRY and James’ Memorial Fund.” Jackie Haggerty sent in donations totalling £492.

www.c-r-y.org.uk


Our • Mrs Jackie Haggerty forwarded a donation of £125 in respect of sponsorship for Mike Crane who was one of the cyclists who took part with her husband Russell in the Battle to Lille sponsored Bike Ride and a further donation of £155 which represents sponsorship towards Russell’s bike ride.

• “Please find enclosed a cheque for £852. This was due to a

fundraising event organised by James’ grandmother Kathleen Haggata. Kath originally wanted to organise a cheese and wine party in her home, selling tickets to attend, and then to sell nearly new clothes that had been donated from a local shop that they no longer wanted along with costume jewellery that others had donated. Unfortunately (or rather fortunately for us) the demand for tickets was so great that she had to find an alternative venue as her home could not accommodate so many. This is where John and Wendy Tollett of Bexhill Conservative Club stepped in and offered to hold it there. Therefore an evening was held for CRY in memory of James on 18 September consisting of a Ploughmans, a glass of wine and a disco along with a stall selling the costume jewellery and a raffle to which local trades had donated a considerable number of prizes. The hefty sum of £852 was raised and an enjoyable evening was had by approximately 65 people.” Mrs Jackie Haggerty.

• 7 mile walk in conjunction with the Rotary Club of Bexhill. “It

has taken some time but finally I have received the last of the money which is a combined effort from mother and daughter Stephanie Clemens and Jenna Britt.” Jackie Haggerty forwarded a further donation of £120 in respect of the Walk in June 2010. In Memory of Matt Hales Mr R Hales sent in a donation of £100 in memory of his son, Matt.

In Memory of Darren Hall St Mark’s Church Centre, Hertfordshire, sent in a donation of £261.42 from the congregation. In Memory of Philippa Harbour “Please find enclosed a cheque for £502.50 which was raised by the pupils of Antony CEVA School in Cornwall. The money was raised by the sale of Philippa’s Beanie Babies, which we, as a family, donated to the school.” Ann, Steve and Jeny Harbour (Philippa’s mum, dad and sister). Steve Harbour’s daughter, Philippa, who was a former pupil at Antony school, died from sudden cardiac death in 2003. Philippa was an ardent collector of ‘Beanie Babies’ and Steve came up with the idea of donating the ‘Beanie Babies’ to the children of Antony school who organised a sale to raise much needed funds. The older children produced a catalogue with

www.c-r-y.org.uk

Fundraisers

recommended prices for each Beanie Baby and within a few days the entire collection had been sold. Steve was delighted with the outcome, “It helps considerably to know that Philippa’s Beanies will help to save other young lives and prevent families from suffering the pain of losing a child”. In Memory of Graham Harrison • HSBC, London E14, sent in a matched giving donation of £500 for Steven and Martin Harrison completing the Great North Run in memory of Graham. A further matched giving donation of £500 was received in respect of Nancy Blackmore. Total £1,000.

• Judy Harrison sent in the donations totalling £1,089; Mick, Alex and Amy Sheperdson took part in the BUPA Great North Run 2010 and raised £250; they also held a race night and raised £686, a quiz night raised £95 and Amy Sheperdson and friends held a Karaoke night and raised £58.

• John, Martin and Stephen took part in the BUPA Great North Run 2010 and raised £1,498 in memory of Graham.

“After taking part in the run for the first time last year following Graham’s sudden death aged 19 the Harrison family and friends (a group of 7) took part to raise funds for CRY again this year. The day was thoroughly enjoyable and a great way to mark Grahams memory and raise funds for a fantastic cause.” Martin Harrison. In Memory of David Harrop Dr Jenny Harrop passed on a donation of £6,000 to CRY Family Screening Manager Tony Hill which represents various donations received in respect of the Handforth testmyheart Tour in October. In Memory of Hugh William Hartley We have received a donation of £223.50, in lieu of floral tributes, for the late Hugh William Hartley, who passed away on 8 September 2010, aged 90. In Memory of Christopher Haw • Gareth Burgess raised £140, through online fundraising, in respect of the Manchester 10K.

• Judith Burgess has raised £401.95 from a sponsored swim. A council officer left ‘high and dry’ after the cancellation of the Great North Swim decided to swim her own one-mile challenge at Crosby Marina. Jude Burgess, who works in Sefton’s tree and woodland team, was among the thousands of competitors due to race in Lake Windermere earlier this month before the event was cancelled due to potentially dangerous algae. The 30-year-old from Southport was determined to complete an outdoor one-mile swim having trained for months and raised more than £200 for the Cardiac Risk in the Young charity (CRY). Staff at the new Crosby Lakeside Adventure Centre marked out a one-mile course on Crosby Marina and Jude was cheered on

CRY update • Issue 53 • 39


Our

Fundraisers

by friends and family to complete her swim in 42 minutes. Jude said: “I signed up for the Great North Swim because I enjoy swimming and thought it would be a great challenge. I also wanted to raise money for CRY in memory of Chris Haw from Southport who was a close friend of my husband. “I was really disappointed when the race was cancelled - there had been a lot of build up for me and I had been swimming four mornings a week before work. “After discussing it with a few people, I decided I still wanted to complete an outdoor swim and the new Crosby Lakeside Centre was an obvious place where friends and family could come and cheer me on.”

an accomplished sportswoman and musician. She played football and ran at junior school, played hockey, netball, tennis, swam and took part in athletics for the seven years at secondary school, and rowed and played hockey at University. She achieved grade seven in piano playing. She went on to complete her Duke of Edinburgh’s Gold Award and her parents received her certificate posthumously from Prince Philip. With Jennifer’s background of sport and physical endeavour in mind, Jennifer’s family and friends have decided to continue with their support of the two charities, and Jennifer’s fund at CRY now stands at £16,471 which hopefully will help to ensure that the vital work will continue. Fund raising has included a boat party on the Thames organised by James Easom, a concert organised by Pam Hepburn, a parachute jump by Jennifer’s cousin Pamela, a memorial concert held at St. Peter’s in the Forest, the Great North Run by Jennifer’s life-long friend Sarah Harvey and the London Marathon by Sarah Harvey and Brett Underhill.

Jude says she has been inspired by the experience and is keen to build on her fitness during the months ahead. She said: “I am doing the 10K run for Cancer Research in Victoria Park Southport next month and hopefully I will achieve my first triathlon next year.” In Memory of Jennifer Hawes James and Nicole Easom climbed Kilimanjaro and raised £7,857. “On the 19th January 2006, our dear daughter Jennifer died suddenly from cardiac arrhythmia whilst staying in Byron Bay during her travels in Australia. She was 23 years old. At Jennifer’s funeral, which was held in St. Peter’s in the Forest church in Epping Forest where she was a member, her family decided that there would only be family flowers, and that people would be asked to donate to two charities, CRY and CHICKS (Country Holidays for Inner City Kids) with whom Jennifer had been a voluntary residential carer as part of her Duke of Edinburgh’s Gold Award. We felt that she approved. Jennifer was

40 • CRY update • Issue 53

The latest fundraiser, last October, was a sponsored climb up Kilimanjaro in Tanzania by Jennifer’s long time friend James Easom and his sister which raised £7,857.” Marilyn and John Hawes (Jennifer’s parents). In Memory of Oliver Hewitt David Cross took part in the BUPA Great North Run and raised £100.

In Memory of

Laura Hillier

• Tony

and Joan Hillier sent in a donation of £30 from Mrs P Hemshall. Tony took part in the Great Salford Swim at Salford Quays in Manchester on Sunday 26 September and raised a further £993.13 in sponsorship.

www.c-r-y.org.uk


Our • Tony and Joan Hillier sent in sponsorship donations amounting

to £1,546 in respect of the British Gas Great Salford Swim. Donations included: K L Wykes £5, D F Young £100, Miss C Young £100, Blisworth, Roade and Grange Park Surgeries £866, sponsorship for Matthew Otten £450 and another donation of £25.

On 26th September 2010 GP Tony Hillier and family friend Matthew Otten, both from Blisworth in Northamptonshire, swam the one mile route around Salford Quays in Manchester as part of the final Great Swim series organised and sponsored by British Gas. They raised just over £4000 in sponsorship money for CRY, in memory of Laura Hillier who suddenly collapsed and died on 20th June 2003 as a result of undiagnosed ARVC. They were originally going to take part in the Great North Swim on Lake Windermere, which was due to be staged on Sep 5th and 6th. Unfortunately this was cancelled due to the presence of bluegreen algae making the water unsafe for swimmers. Rather than allow the training to go to waste and so as not to disappoint all the many people that had donated sponsorship money, the pair of intrepid swimmers signed up for the Great Salford Swim, which was a new addition to the series for 2010 as well as being the last for that year. “Manchester provided a cool bracing day with early sunshine later clouding over. The water temperature was 14.5C. Wetsuits were compulsory. Even so it felt very cold when first entering the water, but after a few hundred metres and after warming up the cold wasn’t a problem. Swimmers went off in waves at half hour intervals, each with a different coloured swim hat for easy recognition. We were in separate waves just after midday. Over 2000 participants took part with over half, including us, swimming for the first time in a British Gas Swim. There were a mix of ages of both sexes as well as a range of abilities and swimming styles. Some were open water swimming enthusiasts, others swimming for the first time for charities, and those triathletes who were adding it as final fun bit of training. The now established redeveloped Quays is a very good venue for spectators wishing to follow the progress of the swimmers, with plenty of places to take photos and videos of their

www.c-r-y.org.uk

Fundraisers

respective friends and family, in and out of the water, and creating an exciting atmosphere for all. The organisation was excellent and Channel 4 programme makers were present filming as part of a one hour documentary on the Great Salford Swim, which has since been broadcast. Our times were very respectable for a first attempt at a mile in open water, and we both had a great sense of satisfaction in finishing without mishap, and we fully intend to continue with the swims in 2011.”

The following day Tony was interviewed and filmed by Stuart Ratcliffe for BBC Look East who was particularly interested in the reasons for the swim and the work of CRY. This resulted in a news-piece later that day on the regional evening and late evening news. Two weeks earlier Tony, accompanied by Joan, had given a twenty minute radio interview in the studios of BBC Radio Northampton on the swim preparations, the work of CRY, including bereavement support and the death of Laura and SADS in general. “It was a good fortnight of publicity locally for the work of CRY.” Tony Hillier In Memory of Peter John Hinchliffe We have received a donation of £1,867.62, in lieu of floral tributes, in memory of the late Peter John Hinchliffe who passed away on 11 September 2010, aged 33 years. In Memory of Liam Hipkin Mrs J Rust sent in a donation of £700, in lieu of floral tributes, in memory of her son, Liam.

In Memory of Nicholas Holland • “Following the success of this year’s Cheshire Game and Angling Fair, I am happy to enclose a cheque for £500 for CRY.” Sonya German, Treasurer, Cheshire Game and Angling Fair.

• Peter Holland made a sponsorship donation of £520 in

respect of family and friends completing the DIFC Super Hero Run in Manchester on 26 September.

• Jill Hulme took part in the DIFC Super Hero Run in Manchester and raised £290.

CRY update • Issue 53 • 41


Our

Fundraisers

• Valerie Brooker took part in the DIFC Super Hero Run in Manchester and raised £263.

• We have received a donation of £210 from Ninka Hulme

following her taking part in the DIFC Super Hero Run in Manchester.

• Gemma Hulme took part in the DIFC Super Hero Run in Manchester and raised £103.

In Memory of Philippa Holmes Sarah McLoughlin and Rachel Reynolds took part in a skydive and raised a total amount of £2,120 through online fundraising. In Memory of Jonathan Hooper • “A collection was taken at our wedding on 6th August 2010. This was shared equally between the church and our nominated charity - CRY. Please find enclosed two cheques totalling £114 donated by the guests at our wedding in memory of my brother Jonathan Hooper.” Stephanie and Richard Mayou.

• “Please accept this donation of £220. This was raised in • Gemma Holland sent in a donation of £12,335 raised

during the polo event held at the Cheshire Polo Club on 5 September in memory of Nicholas. £4,480 was from the auction of a pair of earrings and a trip to New York, William Stobart of the Stobart Group donated £5,000, C Holroyd donated £200. Stewart Irlam, Vicki Irlam, Julie Scott, Claire Freeman, Nick Holland, Gill Holland, Sue Irlam, Hattie Irlam and Michale Irlam, took part in the DIFC Super Hero Run in Manchester and raised £1,655. Also Derek Lyons of Deva Hawarden Board & Display Limited donated £1,000.

• Emma Holland took part in the

DIFC Super Hero Run in Manchester and raised £115.

• Claire Riseley and Duncan Northover took part in the DIFC

Super Hero Run in Manchester (‘Team Holland) and raised £287.

• Neil Almond took part in DIFC Super Hero Run in Manchester and raised £200.

• Sue Catton took part in the DIFC Super Hero Run in Manchester and raised £130.

memory of our godson, Jonathan Hooper, by having an afternoon cream tea.” Doreen Jolly. In Memory of Nina Horndorf Dearsley • Andrew Dearsley raised £475, through online fundraising, in respect of the Copenhagen Malmo Half Marathon.

• Andrew Dearsley took part in the BUPA Great North Run 2010 and raised £330. In Memory of Stewart Howard “Please find enclosed a cheque for £920 raised by Jane, Carol, June and Angie. We held a car boot sale with items donated by Tesco.” Jane Howard.

In Memory of Eloise Howlett Mrs M Yorston forwarded a donation of £1,177.21 raised from a Charity Concert at St Peter’s Catholic Comprehensive last October, which was organised by her daughter Holly. In Memory of Dylan Hughes Mair Kelly and Becca Kelly took part in the CRY Heart of London Bridges Walk 2010 and raised a further £130 through online fundraising making a total raised of £502. In Memory of Gavin Hughes Manesha Gela raised £355, through online fundraising, in respect of the Great North Swim, in memory of Gavin. In Memory of Matthew Hughes Mrs Sylvia Griffiths sent in a donation of £100.

In Memory of Polly Hughes Gazz Wood raised £156.37, through online fundraising, in respect of a sponsored silence.

42 • CRY update • Issue 53

www.c-r-y.org.uk


Our In Memory of Jonathan James Dr Sharon James raised £311 via her Virgin Money Giving fundraising page in memory of Jonathan. In Memory of Mary Jane Clare Audemard and Andrew Coates took part in the CRY Heart of London Bridges Walk 2010 and raised £711.96. In Memory of Philip Jefferies Andrew Barnes, Beverley Barnes and Sophie Barnes took part in the CRY Heart of London Bridges Walk 2010 and raised a further £385 through online fundraising making a total raised of £581. In Memory of Leigh Jepson Conrad Da Cuhna and friends took part in the Paris Marathon and raised £7,932.90. In Memory of Howard Jennings Keeley Ashley sent in a donation of £2,000 from the charity golf tournament on 11th September in memory of Howard. The ‘H’ Howard Jennings CRY Memorial Trophy 2010 raises £2,000. The 14th annual golf tournament took place on Saturday 11th September 2010 at Bulbury Woods Golf Club in Poole, Dorset. Thirty five golfers competed in the Stableford competition for the ‘H’ Howard Jennings CRY Memorial Trophy. The winner of the trophy was Lee Mendes, second was Barry Watson and

Fundraisers

sponsored the refreshments for the day. The Becker team are pictured. It was another hugely successful event with the rain clearing as the golfers began to tee off. By the end of the afternoon everyone was enjoying late summer sunshine. Thank you to all who continue to support the event by playing golf, raising sponsorship and helping with the organisation. Your support is greatly appreciated.” Keeley Ashley.

In Memory of Nathan Jennings “And yet another year has passed since we lost our beloved son, Nathan, and again we have held a charity day in his memory at Mid Kent Golf Club for all his friends. The entry of 102 was fantastic and raised £1,300.” Dave and Jenny Jennings. In Memory of Caroline Johnstone • The students of the Hertfordshire & Essex High School and Science College sent in a donation of £153.33.

• Lesley Johnstone sent in a cheque for £9,403 from a music evening linked with the CazFest, plus two separate donations of £24 and £200. • Mrs Georgina Neal raised £295 from a third Pat Furlong. This year £2,000 was raised. “Huge thanks go to Nicci Blanken of Bulbury Woods for the smooth running of the event on the day, Hobourne who kindly supported this year’s event and Becker (UK) Ltd who made a generous donation and

www.c-r-y.org.uk

tandem skydive.

In Memory of Tim Jones We have received a donation of £120 from Christine Jones in lieu of gifts on her marriage to Robert.

CRY update • Issue 53 • 43


Our

Fundraisers In Memory of Matthew Kamis • Trina Kamis sent in a donation of £215, raised from a Car Boot Sale. She was helped by her Grandaughter Ellie.

• “We had a Christmas Raffle

at the Chiropody Shop, where I am a customer and raised £100 in memory of Matthew.” Trina Kamis. In

Memory

David Keirl

of

Marc Keirl took part in the BUPA Great North Run 2010 and raised £1,400. In Memory of Sophie Louise Kirkland Joanne Kirkland held a ‘Tug of War’ with a raffle and raised £600.21 in memory of her daughter, Sophie, who died in May 2010 from SADS.

In Memory of Judith Krish Tim Froggatt, Julia Good and Rachel Krish took part in the CRY Heart of London Bridges Walk 2010 and raised £1,915 through online fundraising. In Memory of Robert Lancaster • Jo White, Martin McColl Limited, sent in a donation of £1,000 raised at the charity golf day raffle.

In Memory of Iain Lees “Please find amount of £420, for Iain Lees Memorial Fund, raised by myself and Iain’s close friends at a charity evening earlier this year.” Lindsay Lees In Memory of Jonathan Leigh • Jack Storr took part in the BUPA Great North Run 2009 and raised a further £200.

• The CSR Engagement Team, Royal Mail Group sent in a matched giving donation of £200 for Jack Storr taking part in the BUPA Great North Run 2009. In Memory of of Ian Linington Geraldine Thompson sent in a donation of £285. In Memory of Kira Louise Lloyd • “In February a friend put on a Black Tie Evening. Her name is Mrs Wendy Collie, owner of Bella’s Lingerie in Pontypridd, Rhondda Cynon Taff. Wendy raised an amazing amount of £5,000 for our chosen charity, CRY. In July I was presented with a cheque for £1,255 from my local Simply Spiritualist church. This was collected from Cowls Club, church donation, a Spiritualist

• “I am very pleased to pass on this cheque for £750, given to me by my son and daughter-in-law. Stuart Millar and Glynn Dodd, friends of theirs, raised this money by taking part in several challenges.” Margaret Lancaster. • “Earlier this year we got married and decided instead of

wedding presents to ask guests to make a donation to CRY in memory of Robert Lancaster. Please find enclosed some cheques totalling £810. This is in addition to the £4,215 that we have to date, raised online.” Charlotte & Richard Lancaster. In Memory of Paul Leach • Emma Ferrier sent in an additional donation of £273 in respect of her tandem skydive which she participated in with her boss John Tolchard.

• We have received matched giving donations totalling £523 from Barclaycard plc in respect of Gemma Dyson and John Tolchard’s skydive.

44 • CRY update • Issue 53

evening for Kira and a gentleman running the London Marathon. Also in July a local darts team raised £55, and a Spiritualist Evening, hosted by the famous Tony Stockwell and guest Natalie Churchill. They donated the raffle money collected of £106. The total amount enclosed is £6,386. I also enclose a further cheque for the sum

www.c-r-y.org.uk


Our of £500 from a bag packing event which took place in May 2009.” Mr & Mrs Lloyd (Kira’s parents).

• A donation of £600

was received from the Four Seasons Spiritual Pathway to Love and Light in memory of Kira. It was from an evening of mediumship. In Memory of Martyn Luckett • Brenda Luckett sent in a donation of £2,500 raised at the year’s Motor Cycle Trials School held in August in memory of Martyn.

• Brenda Luckett forwarded the following

donations: £220 from Roger Barnes, for a weekend with a brand new Range Rover with a full tank delivered to his door - donated at our trials school barbeque anonymously; £160 from Miss Kayleigh Price, for a day on a motorcyle donated by Muddy Wheels Motorcycle trials hire and £20 from Sheridan Risby, for stewarding a trial for Tonbridge Motorcycle Club. Total donations: £300. In Memory of Aaron Lundy • Peter Doherty raised £380, through online fundraising, in respect of the Belfast Marathon Relay.

• Brian Lenehan raised £130, through online fundraising, in respect of the Belfast Marathon. • Cormac Trolan raised £155, through online fundraising, after completing the Belfast Marathon.

• Jon Trolan raised £200, through online fundraising, in respect of the Melbourne Half Marathon and Sidney City runs.

In Memory of Dennis Lyons “In loving memory of Dennis Lyons, who died suddenly on 13th October 2010. He will be sadly missed by his family and many friends.” Mrs Lynn Lyons sent in a donation of £1,475, in lieu of floral tributes, in memory of her father-in-law. In Memory of Winifred Maddams We have received a donation of £160, in lieu of floral tributes, for the late Winifred Maddams. In Memory of John Magowan Mike Goldsmith took part in the Forestman Iron Man Challenge and raised £265.50. In Memory of Lewis Marsh “Please find enclosed a cheque for the Lewis Marsh Fund for £6,000. Once again the Sandhurst Town boys & girls Football Club has raised £2,000 from

www.c-r-y.org.uk

Fundraisers

their annual Lewis Marsh Tournament. This has been running for 12 years now and has raised over £35,000 for CRY. The Guildford School of Acting held a concert and raised £2,500. They have held concerts in the past for us and have contributed around £10,000 in total - Lewis’s older sisters attended the school (part of the University) and participated in all of the concerts - even after graduating. The rest of the money has come from various local supporters including the Warren School of Dancing and our local Coffee Spot - run by the combined churches of Sandhurst. The continued support we receive means we can continue with our annual local screening.” Gill Weston and Sally Reid. In Memory of Oliver Marsden • “We are delighted to make a donation to CRY following a collection amongst our Members and their guests at our recent Annual Dinner.” Justin Ratcliffe, Chief Executive, Council for Aluminium in Building (CAB) sent in a donation of £750.

• We have received a donation of £245 in respect of Lee Waller’s Riverside 2010 event.

• Sonia Jordan held a tap dancing event and raised £1,377 in memory of her nephew, Oliver.

In Memory of Gary Steven Martin • Maggie Whitlock forwarded a donation of £100 from customers at Pips Smoothies, after the collection box was recently stolen from the shop. “In a week the customers have raised the £100, which we think was stolen, one customer giving a cheque for £30. This is absolutely fantastic.”

• The Martins took part in the CRY Heart of London Bridges

Walk 2010 and raised a further £338 through online fundraising making a total raised of £850. The Martins were Daniel Fox, Valerie Lawton, James Martin, Jodie Martin, Lewis Martin, Sarah Martin, Simon Martin, Colin Morter, Dee Morter, Paul Morter, Nicola Murray, Alan Whitlock, Maggie Whitlock and Marc Whitlock. In Memory of Richard Martin Mary Martin sent in a donation of £300 from the Derrynanny Shooting Club.

In Memory of Dean Mason We have received £213 from Richard Law from sponsorship for completing the Swansea Bay 10K Run. In Memory of Daniel Matthews The students of Hartpury College, Gloucestershire, raised £320. In Memory of Philip Meaney Anne-Marie Meaney, Stacey Meaney and Stephanie Meaney took part in the CRY Heart of London Bridges Walk 2010 and raised a further £415 through online fundraising making a total raised of £549.

CRY update • Issue 53 • 45


Our

Fundraisers

In Memory of Luke Meekings Team Luke took part in the CRY Heart of London Bridges Walk 2010 and raised a further £120 through online fundraising making a total raised of £411. Team Luke were Hannah Battell, Steve Bolland, Bex Booth, Tom Booth, Jebb Bradley, Jessica Chamberlain, Matt Goodworth, Dave Light, Paul Maysey, Michael McClure, Laura Meekings, Roger Meekings, Sam Meekings, Sue Meekings, Thomas Meekings, Dianne Rogers, Luke Rogers, Rebecca Shaw, Nathan Wahl, Dave Wheller, Jessica Wheller, Levin Wheller, Marian Wheller, Rachel Wheller, Anthony Woodcock, Sam Woodcock, Brigid Wootton, Simon Wootton and Lian Xiu. In Memory of Andrew Neil Mogg • Sam Mogg sent in a donation of £500 from Constellation Europe in respect of her taking part in the Bristol Half Marathon on Sunday 5 September and a sponsorship donation of £120 for her sister, Haley Mogg, who took part in the Bristol 10K in May. “All of the fundraising has been in memory of our late brother, Andrew Neil Mogg, who passed away on 14 June 2009 from an undiagnosed case of HCM whilst out running.” Sam Mogg.

• Haley Mogg took part in the Bristol 10K and raised £140 through online fundraising.

In Memory of Oliver Montague Keri Montague sent in donations totalling £8702.73; the charity ball held in September raised £8,677.73 and a further donation of £25 from someone who couldn’t attend the ball. In Memory of Natalie Moody & Ali Ostler “It’s just the way of the world” Act 2. “Please find enclosed a cheque for £202.75, this being the amount made by kids of Act 2 (Hairgel) at their recent show in Axmouth Church.” Malcolm Henty. “The youngsters of ACT2 (Axmouth Children’s Theatre and their friends) were performing again on 30th October 2010. The group, who do it purely for fun and to raise money for charities, put on a one night show in Axmouth Church. The show, written by Malcolm Henty and Beth Wood, raised over £450 which is being split between the Church and CRY. From the minute Callum Wood brilliantly opened the show with “Lets Dance” the audience were treated to a packed programme of songs, sketches, dance and poems. Jess Spiller and Shelby West kept the show moving with their narration and poems.

46 • CRY update • Issue 53

Everyone played their parts as the cast went through some old favourites from their previous shows as well as introducing many new characters such as Dames Unhinged and Crackit, superbly portrayed by Jared Stevens and David Goodhew, and Gordon the Gorilla. Amongst the many highlights were the sketches where Noah told his wife of the forthcoming flood; and the modern day version of the Three Wise (Wo)men on their way to Bethlehem. Another one saw the two old dames installed as Headmistress and PE mistress of St Trinian’s school. Beth Wood and Pacha Woodland both did solos and Megan Spiller along with Katie Walker read the moving poem “Life before the War” to the backing of the Leonard Cohen song “The Partisan”. The local vicar, Gavin, did a slot before the break with his Beatboxing and he also joined the cast in an unrehearsed version of “Jailhouse Rock” to close the show. Several of the cast will be in action again at the Axmouth Village Hall Christmas Bazaar on Saturday 27th November where they will be doing some Christmas songs. They will also be involved in a Variety Show with a meal next April to raise funds for their next production which will be in October 2011. The cast and backstage crew would like to thank Matt and Dave of Alexander Paul Antiques for their sponsorship; and also Gary and Toni of The Harbour Inn for providing them all with suppers after the show. Cast: Beth Wood (co-writer), Ayesha Keast, Devon Foster, Victoria Herrity, Chloe Yates, Megan Spiller, Jess Spiller, Taylor West, Shelby West, Katie Walker, Livvy, Pacha Woodland, David Goodhew, Jared Stevens, Callum Wood.” Malcolm (co-writer and director). In Memory of Hayley Moore “My sister, Hayley Moore, passed away unexpectedly at the age of 27 due to heart complications. We placed one of your charity pots at Hayley’s funeral and I now enclose cheques totalling £140.” Tiffany Moore. In Memory of Jonathan Morgan • Sue Ainsworth took part in a sponsored walk on 21 August and raised £157 in memory of her son, Jonathan.

• Sue Ainsworth sent in a donation of £6,427 from two charity events. • Barbara Bull, Stephanie Bull and Elizabeth Spall took part in the CRY Durham Riverside Walk 2010 and raised £251.

In Memory of Levon Morland • “Please find enclosed a cheque to the value of £191.25. This represents the latest fundraising efforts of my Aunt Greta and her friends through tombolas and raffles.” Jeff Morland.

Jeff Morland forwarded a donation of £200 from the Amicus/Unite Peterlee Branch.

www.c-r-y.org.uk


Our • Richard Ainsley, Elaine Lawler, John Lawler, Catherine Lordan,

Aran Morland, Jeff Morland, Michelle Percival, Steve Percival, Sue Phillips, Krystyna Praszczalek, Stan Praszczalek, Susan Praszczalek and Teresa Watson took part in the CRY Durham Riverside Walk 2010 and raised £198. In Memory of Luke Morris Tina Woolley held a sponsored raised £321.

diet

and

Fundraisers

• Sheila Morton held a fundraising event and raised £205. In Memory of Aine McCann “Aravon, Aisling and Aoife McCann have boarding kennels in Maguiresbridge called K9Kennels. They recently had a surprise delivery of pups from one of their residents Daisy. As Daisy’s owner was unable to take the pups, they were raised and sold to have the money given to CRY. Thank you to Rodney Leonard for allowing the proceeds to go to CRY and thank you to all who bought the pups in helping with this great charity.” Aravon McCann sent in a cheque for £410.

In Memory of Nicholas David Morris “Please find enclosed a cheque to the value of £820 raised on our Charity Golf Day in memory of our late son and brother, who died on 14 August 2000 from viral myocarditis, aged just 17 years. Charity Golf Day held at Princes Risborough Golf Club on Saturday 21 August. £820 was raised throughout the day. This event was held in memory of a loving son, brother, uncle and friend, to all that knew him in his short life, to mark the 10th year anniversary of his passing.” Liz, Dave and Will Morris. In Memory of Allyn McCluskie • Elizabeth McCluskie forwarded a donation of £100 from Filey School.

• We are in receipt of a donation of £515, from John Benson in respect of his Skydive.

In Memory of Sean and Andrew Morris Claire Woods and Jo Koulloupas took part in the CRY Heart of London Bridges Walk 2010 and raised £1,754.01. In Memory of Andrew Murch • Alison Edwards took part in the BUPA Great North Run 2010 and raised £124.

• “Please find enclosed cheques totalling £1,350 in memory of Andrew. This sum was raised at ‘Abba-feldy’, a sing-a-long night in the village of Aberfeldy, Perthshire, where our son Andrew grew up. Andrew died in 2007, aged 21, and the continuing generosity and support from friends and the wider community, including local businesses and organisations, are an enormous source of strength.” Gordon Murch.

All my friends and family were there to support me and I even got to help pack my canopy before jumping. I got all kitted up and ready to go along with another beginner, Rachel, who had spent the day training with me previously. She had managed to get one jump ahead of me so this was her second.

We went in the aircraft with Tracy, the instructor, who kept our nerves away as best she could by entertaining us on the way to 3,500 feet - which seemed to take no time at all.

When the door opened all my nerves disappeared and my training kicked in - feet out, head up and GO!! All I saw was the plane disappearing and then my canopy was open. It all happened so fast it took my breath away but it was a fantastic experience.

No time to enjoy the scenery, down to business finding the landing area and navigating my way back. The ground came rushing up at me and before I knew I hit the deck - literally! Ouch! I knew right away that my ankle was broken but all I could do was wait to be rescued.

Luckily there were plenty of staff and experienced jumpers to come and carry me back to the hanger. With a big smile on my face still, I got a round of applause from the watching crowd. The paramedic and hospital staff were fantastic and I was in plaster within a couple of hours.

• Dave Williams took part in the BUPA Great North Run 2009 and raised £424.01.

In Memory of Ralph Murwill Clare Cowlin, Bob Lester, Dave Murwill, Phil Murwill and Sue Murwill took part in the CRY Heart of London Bridges Walk 2010 and raised a further £534 through online fundraising making a total raised of £930. In Memory of John McCall • “Please find enclosed a cheque for £300 re funds raised from a Tag Rugby Tournament at Armagh RFC. This was run in August by Jamie Cornett, a friend of my late son, John.” Ian McCall.

www.c-r-y.org.uk

“On Saturday 31st July I arrived at Grindale Parachute Centre to make my first ever solo parachute jump. After completing my 6 hours training on a previous date I was all ready to go that morning and the weather was perfect for me.

CRY update • Issue 53 • 47


Our

Fundraisers

Now almost fully recovered, I’m not sure when my next jump will be, if ever, but I am overwhelmed by the support I received and the amount I have raised for this welldeserved charity. I wish you all the best - keep up the fantastic work, I know this money will be put to good use.” John Benson. John Benson sent in a further donation of £1,221.50 after taking part in a Skydive in memory of Allyn. This makes a total raised of £1,736.50.

• Alana Louise Briggs took part in the BUPA Great North Run 2010 and raised £668.56.

In Memory of Hannah McDonogh Laura McDonogh took part in the Snowdon Climb in the Summer of 2010 and raised £458.40. In Memory of Jonathan McGrath Kevin McGrath sent in a donation of £610 in respect of his parachute jump. In Memory of

Oisin McGuinness

The Year 14 students at Sacred Heart Grammar School, Newry, Co Down, raised £300. This donation was forwarded to us by Siobhan McCafferey.

In Memory of Georgie Nelson

• “Please find enclosed cheques totalling £1,860 from the fundraising event evening at Crayford CIU Club on 16 October 2010, which I and my family and friends organised. Georgie was a fun-loving girl and just 19 years and 12 days old when I found her asleep for ever. Georgie is loved and missed so very much by so many people.” Sue Nelson.

• Jacqueline Evans, Toni Evans, Edward McDermott, Carly Nelson and Susan Nelson took part in the CRY Heart of London Bridges Walk 2010 and raised a further £110 through online fundraising making a total raised of £595. In Memory of Ben Newton • Andy Readman took part in the Coast to Coast Trek on 28 June and raised £260.

• DHL UK Foundation sent in a matched giving donation of £600 in respect of Jo Forgan’s Rugby event in memory of Ben. • Andy Readman took part in the Coast to Coast Trek and raised £235.

In Memory of Scott Nicol “Please find enclosed a cheque for £200 which our members have donated to your very worthy charity. The Worthy Master of our Lodge, Mr Craig Nicol, lost his nephew Scott Nicol, who was tragically taken at the age of 21 last year. We hope your charity goes from strength to strength and thank you all for the great work that you do for what is a very worthwhile cause.” Richard Maxwell, Secretary The Loyal Orange Institution of Scotland 712. In Memory of Kerry-Anne Offord Gary Horn sent in a further donation of £190 in respect of the Kerry-Anne Football Five event held in July. Total raised to date £559. In Memory of Josh Ogle

In Memory of Simon McNamara William Quayle sent in a donation of £300. In Memory of Tommy McWilliams

• Tommy’s brother David and friends took part in a 5K Fun Run and his Aunt Paula did the 10K in Glasgow in memory of our beloved Tommy and raised £207. The staff at Barrhead Travel raised £365 and customers at Rhona’s Rolls raised £268. Total donations: £840.

• The Tommy McWilliams Memorial Football match took place on 8th August and raised £1,862 which was forwarded to CRY by Janice Lang.

48 • CRY update • Issue 53

Photo from the cheque presentation in June of monies raised by Dromore Central Primary School from their pantomime. Back: left to right: Steven Carlisle (Vice Principal), Martin Collins (CRY Representative), Alan Cochrane (Principal). Front: two P7 pupils who had lead roles in the pantomime

www.c-r-y.org.uk


Our In Memory of Andrew Parker Pamela Conn sent in a donation of £2,299.92 from the annual Charity Memorial Night in memory of Andrew. In Memory of Andrew Parr • “Please find enclosed a cheque for £534 raised from a collection at Preston North End Football Club on 2nd October. We are always grateful to PNE for allowing us to carry out a charity collection and to the PNE supporters who give so generously.” Ruth Lowe

• “Please find enclosed a cheque in the sum of £4,001

donated by the Student Union of Myerscough College. After our CRY family screening in March 2009, which was held at the college, the students decided that they wanted to raise money for CRY during the academic year 2009 - 2010 to help fund further screenings in the area. The cheque was presented to me at their ‘Well Being Day’ where I had a Raising Awareness stand to promote the CRY screening to be held the following week. I was aware that this was going to happen but the amount donated was a wonderful surprise. By the way, the screening was a success and they hope to hold another next year. Dan, the Student President at the time, and his team of helpers have worked very hard and organised many varied activities.” Ruth Lowe.

Fundraisers

near Preston. The event was held in memory of our son David. At this event Graham and Dorothy’s son - 15 year old Richard was diagnosed with a heart defect. He has since been treated at Alderhey Hospital, Liverpool and is now well. Doesn’t this just underline how important these screening events are? Last Saturday, Graham had a 40th birthday party at which he asked guests ‘please don’t bring presents but give donations to CRY’.” Michael & Dorothy Quinney. In Memory of Christopher Martin Parr • We have received a donation of £325, in lieu of floral tributes, for the late Christopher Parr.

• Philippa Hurst sent in a sponsorship donation of £253 in

respect of the BUPA Great North Run 2010 and another donation of £100 was donated by the local NFU branch as it is their 100th anniversary.

In Memory of Christopher Martin Parr &

Jesse Slack Bostock

“The donation was made to us by Mrs Joan Bostock in memory of her dear husband, Jesse Slack Bostock. Mr Bostock died in Leek Morlands Hospital within a short time of Chris Parr’s death, he was a well known and popular gentleman and many gathered for his funeral. He lived to be over 90 years of age. Mrs Bostock felt that she wanted to give to CRY from the donations made at her husband’s funeral in memory of her husband, for Chris who lived for such a tragically short time. Chris never had the pleasure of meeting the Bostock family.” Jenny Hurst sent in a donation of £100 on behalf of Mrs Joan Bostock. In Memory of Jonathan Parr Christine Parr and Ian Parr took part in the CRY Heart of London Bridges Walk 2010 and raised a further £325 through online fundraising making a total raised of £575. In Memory of Darryl Passfield • John Heatley raised £3,302, through online fundraising, in respect of the BUPA 10k run.

• “Please find enclosed a cheque for £206 raised by holding a

charity afternoon tea. We held the event at a local plants and gift centre which also serves wonderful coffees, cakes and snacks. We were in the garden room where a lovely log fire was burning. Firstly we were given a winter hanging basket and tub demonstration. We were also shown how to make a Christmas door wreath. It was amazing how many plants and how much greenery was used. We were then served with scones and cream tea and delicious cakes.” Ruth Lowe. In Memory of Andrew Parr &

David Quinney

“Please find enclosed a donation of £1,015 from our friends and neighbours, Graham and Dorothy Jenkinson. In March 2009, a CRY screening event was held in our area at Myerscough College,

www.c-r-y.org.uk

• Karen Clarke raised £125, through online fundraising, in respect of the Moonlight Colourthon.

In Memory of James Paterson “I enclose a donation of £550 in memory of James Paterson to help promote CRY’s screening programme. The Bereavement Support Day at Wimbledon Park was well received.” Alastair Paterson. In Memory of Jennifer Paul “Each year the pupils and staff at George Watson’s College hold a Charities Day, at which we endeavour to raise as much money as we are able to contribute towards our chosen charities. On behalf of all at George Watson’s College I would very much like you to accept

CRY update • Issue 53 • 49


Our

Fundraisers the club and they wish to support CRY in David’s memory.” Mick & Dot Quinney forwarded a donation of £100 from Garstang Football Club.

the attached donation of £2,000 from our Charities Day 2010. We hope that it will help towards raising funds for a very worthwhile cause.” Rowena Birkett-Jones. In Memory of Paul Payne Julia Porter, Tina Richardson, Michelle Ruben and Emma Tate took part in the CRY Heart of London Bridges Walk 2010 and raised £296. In Memory of Joe Pearce Willis Fred Pearce, Harriet Pearce Willis and Sarah Willis took part in the CRY Heart of London Bridges Walk 2010 and raised £945 through online fundraising. In Memory of Jason Pennington Carol Orchard and Sarah Pennington took part in the CRY Heart of London Bridges Walk 2010 and raised £300 through online fundraising. In Memory of Alexis Phillips-Martin • Debi Thomas held the Swan Charity Event at the Swan Public House on 29 August and raised £418.

• “I am very pleased to enclose a cheque for £418 on behalf of the British Land Company plc. A fundraising day was held at the Swan Public House in Hordon-on-thehill in memory of Alexis Phillips-Martin (my twin brother). The total raised from that day was £418 which the company that I work for, The British Land Plc have kindly matched. It was a great day and I’m sure a day that my brother would have enjoyed!” Jessica Phillips-Martin.

On a wet and windy Friday, twenty nine teams participated in our annual golf day at Garstang Golf Club. The event was brought forward this year by one month in order to get better light and better weather. We got neither, although the event was still a huge success.

A big thank you to all the helpers, especially Ryan Done, the resident golf professional from Heysham Golf Club, for all his help on the day.

This year’s trophy went to event winners Team Citrosoft, with our local accountants, Towers & Gornall, winning the Yellow Ball Competition.

Garstang Football Club would like to thank all the teams for participating on a wet day at Garstang.

FULL RESULTS: 1st - Citrosoft - 93 points 2nd - Towers & Gornall - 88 points 3rd - J Irving’s Ladies - 84 points Yellow Ball Competition - Towers & Gornall - 37 points Nearest Pin - 5th - Simon Robinson Nearest Pin - 13th - Gill Gardner Longest Drive Men - 9th - M Dickinson Longest Drive Ladies - 9th - J Irving Longest Drive Men - 18th - S Lang Longest Drive Ladies - 18th - J Irving

In Memory of Susannah Porter Ms S Cracknell and 12 other volunteers from Mapeley Estates Limited took part in the 31 mile Trans Dartmoor Challenge and raised £3,682.50. In Memory of Rowan Preston • Angelo Tomasso raised £120.01, through online fundraising, in respect of the Great Manchester Run.

• We have received a donation of £2,390 for Rob Hopkins completing the Three Peaks Challenge.

In Memory of Lucie Proctor “We recently held a Corporate Ball at Sprowston Manor. During the ball we had a charity raffle to raise funds for worthy causes. The office Social Committee decided to support your charity in light of a colleague losing a family member and has particular links with your charity.” Stephanie Carter, Price Waterhouse Coopers LLP sent in a donation of £264. In Memory of David Quinney • “David played football for Garstang FC and since his death the club have held an annual golf competition where they play for the David Quinney Memorial Trophy. This competition is a fundraiser for

50 • CRY update • Issue 53

Citrosoft’s Malcolm Abraham claims the trophy from Adrian Wilding

In of

Memory

Craig Rampton

“Over a two year period an amazing £4,000 has been raised by the Lodge of Hope Portsmouth. Our dear friend and neighbour, Stef King, who was in the Chair for this period, chose Craig’s Memorial fund as

www.c-r-y.org.uk


Our

Fundraisers

“My name is Collette and in January 2010 my partner James died suddenly from a heart condition, leaving family and friends shocked and devastated. James was just 33 years old. He was an amazing partner in every way - hardworking, keen sportsman, full of fun and one of the most loving and kindest people you could ever wish to meet. He was also a fantastic stepfather to Naomi, loving son to Sylvia and Jim, treasured younger brother to Paul and Allison and Uncle and Godfather to Tyler. Our lives will never be the same without him and there will always be a huge gap in our family. CRY has given us all ongoing support and advice about screening - also providing counselling for myself through Carly at the CRY team, who has been wonderful. James’ brother Paul and nephew Tyler also attended Prof Sharma’s clinic in London for screening where they were seen by Dr Papadakis who was also wonderful. CRY has also helped in ensuring that all blood relatives have the necessary screening and this is still ongoing. James’ sister-in-law Allison and myself wanted to show our appreciation to CRY and also arrange something in memory of James for friends and family. We decided to organise a fundraiser which would allow friends and family to get together and reminisce memories of James, whilst also raising awareness of CRY.

one of the chosen charities. Events included two Barn Dances (everyone dressed as Cowboy and Girls), a Quiz Night and two Ladies Nights. One was a Masked Ball and the other was a Black and White Theme. Great times were had by all. It was great to see everyone wearing a mask. On all occasions Stef’s wife Karen did a marvellous job of decorating the halls. Stef and Karen King Also a big ‘thank you’ to everyone who attended these events to make it possible to raise this amount of money.” Mrs Sherralyn Rampton sent in a donation of £4,000.

In Memory of James Read We have received from Allison Read a donation of £2,500, from their Charity Night.

www.c-r-y.org.uk

Allison and Kim with Del Boy On 17th July 2010 - the day before what would have been James’ 34th birthday - we arranged a huge charity fundraising evening at Salvatore’s in Kirkham, near Preston. The evening was packed, with a disco, karaoke, raffle, auction and a very special surprise! On the night Salvatore’s was bursting at the seams with James’ family and friends. Mark Bowden provided us with our free karaoke and disco packed full of James’ favourite songs, as he loved music from all eras! Our surprise guest arrived and the look on people’s faces was just priceless! James would have found it the most hilarious thing ever – a “Del Boy” lookalike!!! We would like to say a big thank you to Maurice Canham for making this surprise possible and a very memorable evening. He was the talking point for weeks and still is!

CRY update • Issue 53 • 51


Our

Fundraisers

Collette and Naomi with Del Boy Raffle tickets were sold throughout the evening and some fantastic prizes were kindly donated from local businesses such as restaurants, hair and beauty salons and local cinemas to name but a few. We would like to thank all the people for their wonderful donations. Brian Sandham from “Stillshot” photography took professional photos during the night to capture those special moments and these were then sold with a donation for each photo bought added to the funds raised for the night. We would like to thank Brian for all his help. The main highlight of the evening was without a doubt the auction, which was undertaken by Marvyn Dickinson - one of James’ closest friends. He was absolutely brilliant, bringing lots of humour and encouraging people to put their hands in their pockets. Auction prizes included: a framed picture of all the characters from “Only Fools and Horses” donated by Maurice; signed England and Everton shirts, football boots signed by Nani and a signed script from Coronation Street all donated by Marvyn Dickinson; a signed Celtic shirt donated by Colm McDonagh; and a CBT training voucher donated by Riverview Rider Training, where James passed his full bike test in November 2009.

In Memory of Tim Read “At our Ladies Night the Worshipful Master, Ken Read, expressed the desire that half the profit from the evening’s raffle should go to your charity. On his behalf I enclose a cheque for £510. The background to this request is that his son, Tim Read, died thirteen years ago due to this problem. Last year his wife, June, died suddenly but Ken decided to continue with his Ladies Night where June’s sister undertook the Ladies role. He wanted to do this so he could once again support your charity.” David H Laurence, Treasurer Canute Lodge No. 4876 In Memory of Edward Reading Joe Payne took part in the BUPA Great South Run and raised £167. In Memory of Malcolm Reed “Please find enclosed a cheque for £250 which is the money we raised on your behalf at our annual Southampton Boat Show Exhibitors party last week. We raised a total of £500 and have split it between you and the Ellen MacArthur Trust. We raised the money by holding a raffle which people bought tickets for. Prizes were donated by a number of local marine and non-marine companies and varied from free nights in hotels to a life jacket signed by Ben Ainslie. I decided I wanted to raise money for CRY in memory of a good friend of mine, called Malcolm Reed, who died a few years ago from an undiagnosed heart problem whilst out sailing in France. He was 28 years old.” James Ward, Managing Director, Marine Resources. In Memory of Tom Reid &

Mike Scott

Helen Hannan and Catherine Leigh took part in the BUPA Great North Run 2010 and raised £105.

We would like to thank all the winning bidders for their generosity and everyone else who helped and donated making the evening such a success.

In Memory of Debbie Rendle “Please find enclosed cheques amounting to the sum of £2,280, which we made at the CRY Awareness Day on Saturday 9th October.” Sylvia Pezzack.

The night itself was very emotional for all of us but we managed to raise a grand total of £2,500 which we know James would have been proud of.

In Memory of Scott Rennie • Lee-Anne Rennie raised £380, through online fundraising, in respect of the Great Edinburgh Run.

All the CRY leaflets were taken on the night, giving knowledge of SADS to friends and family - and this was proven when lots attended the mobile CRY screening at Morrison’s in September. We will continue to raise money for CRY to show our support and appreciation on James’ birthday. Naomi - now ten - is already making plans for a sponsored walk next July that our children can take part in and we have a few ideas for the adults too!” Collette.

• Andrew Walsh raised £280, through online fundraising, in respect of the Coast to Coast Walk.

• Ruth Herd, Calor Gas, forwarded a donation of £100, from the Athenaeum Hotel.

• We have received donations amounting to £100 from Perth & Kinross Council - IT Services dress-down days.

• Henry Ellender raised £3,453, through online fundraising, after he and Ben Smith took part in the Ironman UK.

52 • CRY update • Issue 53

www.c-r-y.org.uk


Our In Memory of Les Roberts Paul Harding, Bala Juniors Football Club, held a tournament in July in memory of Les Roberts, who died last year. CRY Representative Sandra Armstrong collected a donation of £304.07 on 4 November. She said: “A most successful and enjoyable evening. The young man was obviously a much-loved and admired member of the village community.” In Memory of Luke Rogers • Angela Rogers sent in a donation of £501.46 in respect of her parents Ruby Wedding Anniversary.

• Kevin Jenkins took part in the Cardiff Half Marathon on 17 November and raised £225.

In Memory of Luke Anthony Charles Rolfe We have received a donation of £192.92, in lieu of floral tributes, for the late Luke Anthony Charles Rolfe. In Memory of Luke Clayton Rutter • We have received a donation of £1,576.69, in lieu of floral tributes, for the late Luke Clayton Rutter, who died on 21 August, aged 15 years.

• “I am pleased to enclose cheques totalling £355 in memory of Luke. These are the proceeds of a collection taken at Fairhaven Methodist Church.” J. Alan Clark (Treasurer).

Fundraisers

In Memory of Jamie Simpson Rose Dolan took part in the BUPA Great North Run 2010 and raised £175.

In Memory of Andrew Skinner Thomas Harpley raised £375, through online fundraising, after completing the Bupa London 10,000 run. In Memory of Kevin Smart Geoff Goodwin sent in an additional donation of £455 in respect of the Berlin and Loch Ness Marathons.

In Memory of Leonard Smith We have received a donation of £625, in lieu of floral tributes, for the late Mr Leonard Smith. In Memory of Matthew (Mattie) Smith “Once again a go-karting event was held in memory of Mattie at Pontefract Raceway Karting on Saturday 25 September 2010. This event was again sponsored by DS Smith Packaging and a total of £580 was raised. Family and friends had an enjoyable afternoon of racing and for the first time Matt’s mum (Sue) and sister (Lily) took part. Matt’s brothers (Mick and Jim) alongside his cousins, took part in a under 16’s fun endurance race to see how many laps they could do in half an hour. The winner of Mattie’s Memorial Cup this year was a Mr Jon Boughton.” SC Whitney.

In Memory of Craig Salmon Joyce Salmon sent in a donation of £1,467.

In Memory of Neil Schuyleman Debbie Collett, Fiona Collett, Andy Davies, Georgie Davies, Helen Davies, Peter Davies, Ann Edwards, Emma Edwards, Alexia Georgakakos, Anna Geogakakos, Hugh King, Janice White, Cathi Wye, Kenton Wye, Monica and Susie took part in the CRY Heart of London Bridges Walk 2010 and raised a further £670 through online fundraising making a total raised of £1,705.

From left to right: Matthew’s Dad (Gary), Brother (Mick) and Mum (Sue)

In Memory of Jonathan Shaw Emma Barr, Simon Barr and Anton Price took part in the BUPA Great North Run 2010 and raised £527. In Memory of Ben Simpson Joe Simpson sent in a donation of £730 raised at the annual golf day in memory of Ben.

www.c-r-y.org.uk

CRY update • Issue 53 • 53


Our

Fundraisers

In Memory of Belinda Smithson Sam Robinson took part in a tandem skydive and raised £1,000. In Memory of Daniel Solomons Nicole Hudson sent in an additional donation of £125 in respect of the 10k run event on 5 June in memory of her brother, Daniel. In Memory of Lee Philip Stables • Sharen Stables sent in donations totalling £782.69. £385.69 from the charity motorbike ride, £25 from Val Robertson, £42 from Brocklebanks Fruit and Veg shop and an anonymous donation of £330.

• Sharen Stables forwarded a donation of £100 from David Woodburn.

In Memory of Paul Sykes Team Sykes took part in the CRY Heart of London Bridges Walk 2010 and raised a further £180 through online fundraising making a total raised of £845. Team Sykes were Patricia Berry, Edward Blowers, David Dillon, Susan Dillon, Anna DillonPatel, Deborah Hyder, Sean Hyder and Carly Sykes. In Memory of Andy Tait Audrey Meek sent in a donation of £2,742.30 which was raised at the Andy Tait Charity Golf Event, held on 17 June at Thornton Golf Club in Fife. “The Andy Tait Memorial trophy is now in its 10th year and was established to commemorate the life of Andy Tait, an otherwise fit and healthy young police officer, who died from an underlying cardiac disorder in February 2001, aged just 26.

In Memory of David Staff Jonathan Stubbs, Darwen Dasher Running Club, sent in a donation of £450 from the David Staff Memorial Fell Race.

In Memory of David Staff &

Neil Wickers

Granville Staff sent in cheques totalling £776 in memory of David and Neil. In Memory of Paul Stephen Rachel Coffey raised £610, through online fundraising, in respect of the Himalayan Trek. In Memory of David Storey “I am pleased to be able to send you a cheque for £160 for CRY raised on the weekend of 26th September. A group of friends of David Storey, who died suddenly back in 2007, took part in a walk in memory of David and also to raise money for your charity.” Emma Thorn. In Memory of Cameron Strathie Martin Ogg raised £270, through online fundraising, in respect of the Chris Hoy Half Marathon.

In Memory of David Styles • Liam Styles sent in a donation of £150.

• Liam Styles forwarded a donation of £345 from Mr S J Deare. • We have received from Liam Styles, Steve Deare and Ben Gomperts a donation of £4,613 from sponsorship for climbing Mount Kilimanjaro in August.

In Memory of Emma Sumner Victoria Glass raised £935 through online fundraising.

54 • CRY update • Issue 53

Pictured left to right at the entrance to Police Headquarters – Asst Ch Const Andrew Barker, CRY Patron Gregor Townsend, Andy Tait Snr and Maggie Tait. Since his death, Fife Constabulary and Andy’s family have commemorated his life by running an annual charity golf competition at Thornton Golf Club. This has grown in stature over the years and has raised a significant amount of money for charity. Andy’s colleagues, friends and family have continued to support this special event and it is a real testament to how popular Andy was, and how much he is missed. Andy’s grandmother donated the trophy for the first competition in 2001 and Andy’s father, Andy Tait Snr (a retired Police Sergeant who served mainly as a Traffic Officer in Fife) continues to support the annual outing and plays a very active role in the organisation of the event. The charitable focus for this year’s special day was CRY - Cardiac Risk in the Young. Founded in 1995, CRY offers support to those who have suffered a bereavement. The charity is very close to the hearts of Andy’s family and as part of the fundraising, an on-line

www.c-r-y.org.uk


Our Charity Auction was launched which provided an opportunity to raise funds for CRY, whilst allowing an opportunity to bid for some fantastic prizes. In total the excellent sum of over £2,742.30 was raised with a cheque presented last week to former Scotland Rugby star Gregor Townsend who collected the cheque on behalf of CRY. In Memory of Hannah Taylor “Please find enclosed the sum of £145, being the total raised from a handbag sale, afternoon tea and raffle held by Mrs Pat Cory in co-operation with my wife.” Charles Bull.

Fundraisers

Apart from one, we were all first time runners and while the majority of us finished in sub 2 hours, we had one runner that did it in just 1 hour 34 minutes. We had an amazing day and we felt Zoe was with us every step of the way.” Pete Teale

In Memory of Kelsey Taylor Gemma Moore took part in the Liverpool Half Marathon on 28 March and raised £205. In Memory of Zoe Teale • Sue Westwood took part in the Birmingham Half Marathon and raised £207.

• Clive Kay took part in the Birmingham Half Marathon and raised £146.63.

• Pete Melia took part in the Birmingham Half Marathon and raised £113.97.

• Mike Jarrat took part in the Birmingham Half Marathon and raised £211.40.

• Peter Teale took part in the Birmingham Half Marathon and raised £633.50.

• Greg Mason took part in the Birmingham Half Marathon and raised £1,005.

In Memory of Dale Tennent-Butler • Angela Tennent-Butler sent in a donation of £1,862 which was raised during a charity disco in the village that Dale lived. “We raised the money from ticket sales, raffle tickets and the sale of wrist bands.” Angela Tennent-Butler.

• Angela Tennent-Butler sent in a donation of £100.

• Simon Dawes took part in the Birmingham Half Marathon and raised £147.10.

In Memory of William James Thomson “Please find enclosed a cheque for £250.20 being the proceeds of (and also donations to) a quiz, which our family recently organised.” Anne Lowther. In Memory of Nicholas Thomas “Enclosed please find a cheque for £705 in memory of our son Nicholas Thomas, who passed away on January 13th 2005. The sum was raised by our dear friends Carrie and Richard, who recently hosted a barn dance and party to celebrate their 25th wedding anniversary. They asked all the invited guests to donate money to CRY instead of buying them a gift. A raffle was also held during the evening, with prizes donated by local businesses and friends.” Jenny Thomas.

“On a cold October Sunday morning, 9 CRY runners took part in the 2010 Birmingham Half Marathon. They consisted of two neighbours, and teaching and catering staff from Oldswinford Hospital School in Stourbridge.

www.c-r-y.org.uk

In Memory of Scott Thurlow Chris, Marcelle, Michael and Wendy Thurlow took part in the CRY Heart of London Bridges Walk 2010 and raised a further £335 through online fundraising making a total raised of £485.

CRY update • Issue 53 • 55


Our

Fundraisers

In Memory of Richard ‘Rich’ Tomkins • Team Sun Boy Rich T took part in the CRY Heart of London Bridges Walk 2010 and raised a further £55 through online fundraising making a total raised of £278. Team Sun Boy Rich T were Tony Blackwell, Jan Blackwell, Peter Dunkley, Wendy Dunkley, Amy, Joanne and Melissa.

It is a way that we may always walk in the future.

I am so glad that we walked and without the love and support of everyone on our team I don’t know that we could have done it at all.

We ended the day with a meal and a glass of wine in the pub for Rich’.

“Sunday 15th July 2007 was a sunny blustery morning as myself, my husband and my son, Rich’ and his girlfriend, Laura, set out at 7.15 to get in the car for the drive to London to take part in CRY’s first ever London Bridges walk. We met up with the rest of the team at Westminster Gardens and looked around us.

With Rich’, in 2007, we completed the walk in 5 hours. I am so proud of him for managing to do this.

Love you always Rich,

Mum xxx” Wendy Dunkley.

We realised that we were just about the only group walking in support of people. We were walking in support of Rich’ and Rich’ in turn was walking with and in support of Kerry and Julie Mills from CRY.

It broke our hearts to see photos of young people on t-shirts and we could not begin to imagine how those families felt.

What no one could have ever foretold was that a year later, on the 24th July 2008, Rich would be so cruelly taken away from us.

In 2010 we knew that we had to complete the walk again for Rich and for CRY but knew that the weekend itself may be a problem so on the 11th July Pete and I set out for London to do a practice run. I’m so glad we did as we soon found that one of the bridges, where we had stopped in 2007 for drinks and sandwiches, was the one where the memories flooded back in like an old cine film. I ran across the bridge to try and stop the hurt.

Armed with our knowledge we decided that we would attempt the walk itself.

Sunday 18th July 2010 was a sunny blustery morning as myself and my husband, our best friends and Rich’s girlfriend Amy and her friend Joanne set out for the drive to London. We had our badges of Rich pinned safely to our t-shirts and we were going to do this.

This time we knew how everyone else felt but armed with balloons, dark glasses and loads of tissues we were going to do this. That bridge came and again I ran across it but we all managed to complete the walk.

Seeing Alison Cox afterwards and chatting helped as in 2007 Rich’ had attended a CRY meeting as a youngster with a heart condition.

Speaking with her has given me the courage to write this in that if anyone ever finds themselves in the same position as having walked the walk with their young person and then finds themselves in that ‘elite club’ of having to walk in memory of: then we found that it did help to complete a trial run of the walk at your own pace. You remain completely anonymous which helps when you find your ‘moments’.

56 • CRY update • Issue 53

• “Please find enclosed a cheque for £100. In June, my brother

cycled across the Pyrenees to raise money for Rich’s fund and this £100 was collected by my hairdresser’s.” Wendy Dunkley (Rich’s mum).

“Just before Christmas last year my brother, Andrew, announced that he was thinking of cycling across the Pyrenees in June for my son, Rich’ and would Pete, my husband, and myself be able to help in any way at all.

In later months he admitted that I could be heard holding my breath from several miles away.

He was right. It was one of those moments in life that you would never have envisaged 2 years ago having to think about and I did not want too. My brain shut down and I found it almost impossible to think about. The idea was amazing but why we were doing it was right at the front of my mind. Eventually we looked at it from how Rich’ would look at it and we decided that as it seemed to involve a holiday, of sorts, Rich’s favourite past time, that we would go and have one of what was known as “ one of mum and Pete’s excellent adventures”.

Flights booked, time off arranged and CRY Bear ready: we were now going.

18th June 2010 There was no going back now as long as I could get in the car for the long drive to Folkestone and then through France to Hendaye. The hard part was getting in the car and knowing why we were going but we had always promised to take Rich’ through the Euro Tunnel and armed with his photo we were going to do just that.

We set off, and with tears, made the tunnel and the crossing. Then the long drive began for Pete and Andrew.

19th June 2010 We arrived in Hendaye and met the rest of the team. Andrew had said that there was another chap cycling – what none of us knew was that he was from South Africa and only 15. You can never prepare for the feeling that engulfs you when you realise that the other person is only 8 years younger than your son. Tears came: but suddenly we were involved in ‘lugging’ baggage and bikes about and sorting out who was in what room. After a well-deserved meal we felt that we had known Ian, Alison and Alex for a long time and plans were being made for the next day.

www.c-r-y.org.uk


Our

20th June 2010 Breakfast finished and we were ready for the off. Well we would have been but remembered that my brother is a ‘professional faffer’ so off Pete went to give him a hand with things. The bike being the important item.

Photos taken along Hendaye beachfront and we set off. We were following Alison in her van, helping as the support crew and finding stops to wait at while the boys caught up. We suddenly realised that these boys could pedal furiously and we nearly didn’t make the first photo opportunity of them coming around the beach road.

We had great excitement in the afternoon as we all had to stop to watch the vultures circling on the thermals. Of course we had to do the joke about “ do you know the cyclist who was carried away by the vulture”.

It was a lovely day and the scenery was fantastic but whilst wearing our T-shirts for CRY we were always very aware of why we were doing things.

21st June 2010 Andrew had mentioned last night that he’d asked the boys if they would wear their CRY cycling jerseys that had been made for the trip. As the boys came out the front of the hotel nothing could have prepared me for the feelings that swept over. They all looked so smart but right at the front of my mind was the anger that they shouldn’t be wearing them at all. After tears and the first photos of the day we set off for our first day in the mountains. The scenery changed spectacularly. The hills were becoming larger and we had time to get out our chairs. Or so we thought. Young Alex was turning into a speed freak. We shouted words of encouragement as he flew past and then sat and waited awhile for Andrew and Ian, who were pacing themselves for the week. Lots more shouts of encouragement and photos and video and we were off again looking for the next pit stop.

Col de Marie Blanque and the Col d’Aubisque were today’s highlights and they were amazing. We had a game of chicken with a French cement mixer that had forgotten that the mountain roads were also used by cyclists and cars! Just to say that there was a ditch at the side of the road and we used it. Poor Alison, driving behind, had a moment of panic as she thought that we wouldn’t make it.

22nd June 2010 Our time in the Pyrenees was up and we had to go home. Andrew and the boys had to face the prospect that they were two down on the ‘shouting words of encouragement stakes’ and rally their own enthusiasm for the rest of the week. It was a hard day for all concerned. The Col de Tourmalet was the challenge for them and they did it with style.

23rd June 2010 Our first morning back at home. I never realised what an effect that would have upon me. The whole world fell apart and I couldn’t manage to go into work. What were the boys up to, what was the scenery like, who would help Alison with ‘supporting’ and most of all ‘why had we even had to do the trip’ were all questions inside my head.

www.c-r-y.org.uk

Fundraisers

It was one of the most difficult days of my life.

Apparently it was a beautiful day in France and the boys had a massive challenge ahead of them. The Col de Perysourde, Col de Ares and Col de Porte D’Aspet were the challenge. They managed with their usual style. On arriving at the hotel for the night it was discovered that they would all be sharing in a family room. Who was the adult in charge? We were never sure about that.

24th June 2010 It seems that France does the finest Strawberry tarts in the world for lunch and Alex had the first accident of the trip so far. A spoke had broken on his bike but with a quick repair job completed they all finished today’s ride.

25th June 2010

The last day and both myself and Pete had another ‘down day’ as we were not in France to see Andrew and the boys finish this epic cycle ride. We were also hoping that ‘CRY Bear’ who had managed to appear in several photos would be on the bike going across the finish line. It was another very hard day waiting to receive a text from Andrew saying that he had finished.

And finish he did. Some 85 miles later when they originally thought that it was only 65miles to Cerbere: the last town in France before Spain.

At last we received the long awaited text. Andrew and team had finished. We were so proud of him for completing this epic for Rich’ for CRY. Tears came again but turned to smiles as we found out that CRY Bear had been carefully tied onto the bike and he to had crossed the finish line.

Andrew had cycled 486 miles over 6 days and cycled for duration of 34.5 hours and in the process used up 35,606 calories and lost 5 pounds in weight.

I’m glad that we found the strength to go and support Andrew but quickly found my boundaries in that I am not a natural fundraiser as it opened up too much pain and anguish at this time.

CRY update • Issue 53 • 57


Our

Fundraisers

I do have to smile now as at the end of the ride my CRY gilet and a cycling jersey were given to Alex to keep. I do wonder if he wears them while cycling around South Africa. I think so and what a fantastic way to perhaps gain further recognition for CRY.

I am so immensely proud of my brother for completing this challenge. To date £3905 has been raised for CRY.

Thank you Andrew.” Wendy (Rich’s Mum).

In Memory of Leon Walker Katy McDonnell raised £749 from fundraising that took part at the City Reds v Leeds Rhinos super league game. In Memory of Richard Whitehead “Please find enclosed cheques to the value of £2,252.50 being the result of a charity fundraising day held in our garden on 7 August 2010. Around 150 turned out to support us in raising money in memory of our son Richard Whitehead who died suddenly on 9th August 2004 at the young age of 26. The theme of the day was ‘A Day at the Races’ and consisted of video horse racing, live entertainment, a bouncy castle for the children and an ample supply of hot dogs and drinks. The event was an enormous success and we would like to thank all who helped us to achieve this amount. In particular, thanks to all sponsors for providing food, beverages and raffle prizes.” John and Pam Whitehead.

14 1/2 years old, but was big and strong for his age. He was kind and gentle and his schoolmates called him the ‘BFG’ (Big Friendly Giant).” Mark Wibberley. In Memory of Neil Wickers • Irene Wickers sent in a donation of £190 raised at a bowling match at the Two Gates Club in Darwen.

• Irene Wickers sent in a donation of £656 from a Tombola Stall and Christmas raffle held at Darwen Market on 3 December. In Memory of Neil & Billy Wickers Irene Wickers forwarded donations amounting to £670 in lieu of floral tributes, for the late Billy Wickers. In Memory of Neil Wickers & Warren Berry Irene Wickers forwarded a donation of £1,500 raised at a Fun Night at the Bridgewater in Darwen by a young lady (Monica) who sadly lost her husband, Warren Berry, when he had a heart attack. In Memory of Robert Wilde Soledad Correa held a charity night (Gala Quiz and Raffle) on 16 October 2010 in memory of Bobby (Robert Wilde) and raised £1,234.01.

In Memory of Emlyn Arthur Wibberley “Please find enclosed a cheque in the sum of £382.87 raised for CRY in the memory of our son Emlyn Wibberley. The money was raised from members of Putney Cricket Club at a 7-a-side intraclub cricket tournament hold on Saturday 4 September 2010 on Putney lower Common. Emlyn was walking to the bus stop to catch his bus to school as usual on the morning of 9th June 2010. He suddenly and unexpectedly collapsed and died, despite the valiant efforts of a passing off-duty policeman, attending paramedics and doctors. We had the inquest at the Westminster Coroner’s Court on 1 September where it was confirmed that he had a sudden arrhythmic cardiac death. His death came out of the blue and has shocked all his family and friends. He was only

58 • CRY update • Issue 53

In Memory of Paul Wilkins “I am the team captain of the Ball Busters Flyball Dog Club. As you know we have previously donated funds to you from the proceeds of a tombola and raffle which we run at our indoor flyball tournaments at Maidstone. I am very pleased to enclose a cheque for £100 which we raised for our charity at our tournament in November.” Mrs Debbie Collins In Memory of Laura Williams Greta Bridges, Daniela Cerda, Ann Edgar, Samantha Fortune, Hollie Jones, Tara Jones, Margaret McDermott, Lisa Murphy, Zena O’Connor and Elizabeth Woodbridge took part in the CRY Heart of London Bridges Walk 2010 and raised a further £1,685 through online fundraising making a total raised of £1,905. In Memory of Nathan Woodcock Vernon Elmes took part in the CRY Heart of London Bridges Walk 2010 and raised £200.

www.c-r-y.org.uk


Our In Memory of Louise Worth Matthew Atherton took part in the BUPA Great North Run 2010 and raised £500.

In Memory of Richard Wright SSgt Jason Pascoe took part in the BUPA Great North Run 2010 and raised £300. In Memory of Daniel Young Leigh Cricket, Tennis & Bowling Club held a cricket match in memory of Daniel and raised £353.45.

In Memory of Mark Young Neil Robertson took part in the Virgin London Marathon 2010 and raised a further £300.76 making a total raised of £440.76.

• “Please find enclosed a cheque for

£233.52 to help a little towards the excellent work you do. The money was raised by pupils and staff. The pupils took part in a sponsored run in June and I undertook a cycle ride from John O’Groats to Land’s End in July.” Andy Clare, Head of Art, The Bishop’s Stortford High School.

• Jack Breuer took part in the Run to the Beat half marathon and raised £1,021.

• “On behalf of the pupils, parents and staff of Broad Haven Primary School I have pleasure in enclosing a cheque for £122.70. This donation represents the funds collected at our recent Harvest Festival.” S Thomas, Headteacher

• “In October I walked to work (7 miles) for a week in order

to raise money for CRY. Because of the generosity of the teachers and staff at Whalley Range High School I am able to enclose a cheque for £305. Though, fortunately, I have not been affected personally by the sudden death of a loved one, I know someone who has and I appreciate the tremendous work your charity does.” Phil Baldwin.

General Fundraising

• “Please find enclosed a cheque for £150 being a donation

from the profits of our Charity Shop to help you in your work.” Mrs Frances Smith (Trustee) 1st Class Drop in Centre & Charity Shop.

• Guy Allen raised £1,450, through online fundraising, after completing the London to Paris Bike Ride.

• Paul Bailey raised a final amount of £1,803, through online fundraising, in respect of his completing the Stockholm Marathon with Debbie and Phil Lee. Total raised: £2,178.

• A donation of £150 was received from Bytes Technology

• Amy Collins raised £525, through online fundraising, in respect of the 2010 British 10K London Run.

• Les Cooper raised £545 in respect of the John O’Groats to Land’s End cycle ride.

• Gayle Cranage raised £1,358.54, through online fundraising, in respect of the Big Fun Run, Coventry.

• Helen Cross sent in a sponsorship

donation of £461 in respect of her skydive.

• “I enclose a cheque for £250 as part of

the proceeds of the Colchester Charity 10K race, organised in conjunction with Colchester and Tendring Athletics Club.” Bil Abbot, Treasurer, Rotary Club of Colchester Trinity.

Group in respect of Paul Bailey completing the Stockholm Marathon.

• “Following our annual mini festival I am delighted to enclose a cheque for £250 for CRY which was raised during the ballot at this event.” Mark Thallon, Bangor Mini Rugby Selection.

• “We are pleased to inform you of our successful Sweet

Sale held on 22nd October at Barclays, Gadbrook Park in aid of your charity. We managed to raise £150.” Clare Plant, Barclays Bank Corporate Learning Team.

• Alison Cook, Barclays Bank, organised a sweet sale and sent in a donation of £150.

• Oliver Tebbutt sent a CAF donation of £250 from the Deloitte Foundation.

• Elinor East took part in the Royal Parks Half Marathon and raised £275.

• Katie Flack took part in a sponsored skydive and Click & Jump sent in her donation of £269.32.

• “Please find enclosed donations

totalling £1,425 from the Captain, Seamus Friel, for the Night Golf. His chosen charity was CRY. The night was held on Friday 5th November.” Louise McShane.

• A matched giving donation of £255 from Barclaycard has been received in respect of Dandhya Murali.

• Rachel Bellon raised £625, through online fundraising, in respect of the Just Walk 2010 event.

• “I am forwarding a cheque for £100 which was donated to our Captain’s charity by a group of four who were allowed access to the golf club to play a 72 hole marathon in aid of diabetes. The group raised some £4,000 and kindly donated £100 of this to CRY.” Gordon Fraser, Captain, Betchworth Golf Club.

www.c-r-y.org.uk

Fundraisers

“Last night – Friday 5th November (Guy Fawkes night), Strabane Golf Club had some fireworks of their own.

70+ golfers played in the first Night Golf competition held in the north of Ireland.

We were blessed with a great night which helped make this a night to remember.

CRY update • Issue 53 • 59


Our

Fundraisers

When James Patton approached our Captain Seamus Friel about having a golf competition at night time, Seamus thought he was mad!! Anyway a few months later, after a lot of preparation, we played in the dark. Glow-in-the-dark balls were being launched into the air and golfers were having a brilliant time, we even had a few birdies!!!!

Along with all the craic there was a serious side to the night, this year the Captain’s chosen charity was CRY, and all proceeds went to this worthy cause. Louise McShane from the charity was there last night selling tickets and adding to the total of £1,425.”

through online fundraising making a total raised of £185.66.

• “Please find enclosed a cheque for £215 which has been

donated by the employees of James Brothers by way of Dress Down Fridays. My grandson suffers from Wolf JackobsenWhite Syndrome and came very close to being lost at 6 weeks old which was why CRY was chosen.” Gwen Trevett, Account, James Brothers, Dorset.

• Mike Jennings raised £380, through online fundraising, in respect of the 2010 British 10K London Run.

• Lorna Betts, Treasurer, Knutsford Phoenix Theatre Group,

sent in a donation of £150. “We are an amateur dramatic group and this money was raised earlier in the year from some of our performances.”

• Jasna Kroce raised £190, through online fundraising, in respect of the BUPA 10k Run.

• Dean Lamb took part in a tandem skydive and raised £125.

• “Each year we, as a company, invite

employees to nominate a charity for a Christmas donation. At Petra Lewis’ request, pleased find enclosed a donation of £100 from Lucas Alexander Whitley Ltd.” Holly Vitow.

• A donation of £265 was received for Elaine Gayle and her team taking part in the King Sturges Triathlon.

• “For our company’s 50th Anniversary in 2007 we set up a

Charity Committee to raise funds for various charities. This year we were asked by a member of staff to include CRY as a chosen charity for 2010. Please find enclosed a cheque for £1,000 from our company charity fundraising. The money was raised by holding numerous events during 2010.” Ms Jane Pack, GFK Automotive.

• Mrs S Mason sent in a donation of £180, in lieu of floral tributes, for her late mother.

• We have received donations totalling

October 2010 and raised £350 for her son, Russell, who survived heart failure.

£730 from five people who took part in tandem parachute jumps arranged by Moonjumper Sky Centre: Patrick Nodder £200, Elaine Clugston £140, Aaron Edens £140, Helen Paisley £140 and Lai Ping Poon £110.

• Kim Gunn took part in the Run to the Beat half marathon and

• Amanda Moore took part in the Battle to Lille Bike Ride and

• Kathryn and Jack

• “Our Masonic Lodge has held several fundraising events

• Virginia Goodman held a ‘nearly new’ clothes sale on 16

sent in a donation of £128.

raised £325.12.

Hegarty took part in the Cardiff Half Marathon and sent in an additional £250 for sponsorship, making a total raised of £330.

• Nigel

Hough, Helmores Chartered Accountants, sent in a donation of £400 in lieu of sending Christmas Cards.

• Jack Hillcox raised £1,235, through online fundraising, in respect of his team taking part in the Charterhouse 50 Miles as the Village People Walk.

• Paul Bentley-Smith (i2 Limited) sent in a donation of £1,596. • Anna Jackson and Emma took part in the CRY Heart of London Bridges Walk 2010 and raised a further £35.66

60 • CRY update • Issue 53

throughout the year culminating with the Ladies Night festival in May. Through these events we have been able to raise the total sum of £500 towards the work of your Charity.” Greg Bates.

• Sarah Morgan took part in the Great Salford Swim on 26 September and raised £200.

“There was bitter disappointment for all participants when this year’s Great North Swim at Lake Windermere was cancelled at such short notice due to the presence of blue-green algae in the water. There is no doubt that the cancellation of this event hit many charities quite hard this year.

As an alternative I was fortunate enough to be able to enter the Great Salford Swim which was held a few weeks later at Salford Quays on 26th September 2010. This would mean that my year of training and my fundraising efforts would not go to waste and I would be able to achieve my goal of swimming one mile in open water whilst raising money for CRY.

www.c-r-y.org.uk


Our

Fundraisers

CRY Test My Heart screening in Durham donated enough money to enable me to exceed my fundraising target of £400. So far I have raised over £400 for taking part in this event.

2010 was the first year of the Great Salford Swim, a new event in the Great Swim series, and it was a privilege to be a part of what was a wonderful day. Thankfully the weather was good, it was probably one of the better days we’ve had this September and it was perfect conditions for open water swimming (no blue-green algae in sight!). The atmosphere at the event was fantastic with large crowds of supporters and spectators cheering on the swimmers throughout the day. My race began at 1.00pm and I had a target finish time of 1 hour which I am pleased to say I smashed by finishing in 51 mins 59 seconds. It was a great end to what has been a year of training hard and working towards comfortably swimming the one mile distance. Next year I intend to enter both the Great North Swim and the Great Salford Swim. I loved the Salford venue and would like to swim there again and I would like to finish what I started by swimming in Windermere next year. I have fallen in love with open water swimming and now that I have a time to beat I’m sure that will keep me motivated to train even harder for next year’s events. I would recommend open water swimming to anyone. The emotions you experience when you’re out in the elements is incredible and the sense of achievement you feel at the finish is amazing. It’s so much better than swimming in a pool full of chlorine! At the 11th hour a mystery donor who attended the recent

A big thank you to all of my sponsors and to my family and friends who have supported me whilst training for the event. I would be interested to hear from anyone who would like to take part in one of the Great Swims in 2011.”

Sarah Morgan

• Thomas Morris raised £390, through online fundraising, after he completed the Llandudno Triathlon.

• Team Morris took part in the CRY Heart of London Bridges Walk 2010 and raised a further £2,241.50 through online fundraising making a total raised of £2,854.50. Team Morris were Jeanne Batterbury, Ingrid Beazley, Tom Beazley, Charlie Burn, Alexa Jarzebowska, Deborah Krempel, Steven Krempel, Cecil Lee, Abigail Mackeen, Mukram Mackeen, Alison Morris, Freddie Morris, Livvy Morris, Paul Morris, Tom Morris and Richard Nunn.

• Ross McFarlane raised £1,169, through online fundraising, in respect of the ‘golfathon’ fundraising event.

• Audrey McInnes sent in a donation of £161.50 from the Fun Day at the ladies section of the Dairy Bowling Club.

• We have received a donation of £1,197.88, from Simon

Drake in respect of team Naim Audio for their Three Peaks Sub 24 Hour Challenge.

• Mark Nicholas took part in the Virgin London Marathon 2010 and raised £850.

• Mo Orfali raised £1,575, through online fundraising, in respect of the Mizzen to Malin Cycle Ride.

• CRY Research Fellow Dr

Michael Papadakis was selected as European Young Investigator of the Year for a presentation at EuroPRevent 2010 (the European meeting place for Science in Preventative Cardiology, run by the European Society of Cardiology). He donated the prize money of £395.92 to CRY.

• The Parish Church of St George the Martyr, Waterlooville,

sent in a donation of £127.55 from the retiring collections for two weeks in August.

• Oliver Paxman took part in the BUPA Great North Run 2010 and raised £200.

www.c-r-y.org.uk

CRY update • Issue 53 • 61


Our

Fundraisers

• James Pearce raised £150, through online fundraising, in respect of his team completing the London to Cambridge Cycle Ride.

age group in a time of 25 minutes and 6 seconds. I have raised £360 in sponsorship but will carry on fundraising until our swimming club event in September.” Chris Smith

• Mark Robson took part in the BUPA Great North Run 2010

• Rhian Rees took part in the Asics British 10K London Run

• Mr D Oultram, Treasurer, Rotary Club of Leigh, sent in a

• Sue Rigby sent in donations amounting to £543 in respect of

and raised a further £162.72, making a total of £182.72.

and raised £300.

the Guitar Academy Show. £200 from Tarletron High School and £343 from the students of the Academy.

donation of £100.

• “It is with pleasure I enclose a cheque for £220. This was

raised holding a charity band night at Walsall Wood Football Club. Local bands included Our Broken Society, Blind Camber, Paisley Riot and Thieves Like Us. Local DJ Ian Bennett also filled the gaps whilst the bands were setting up. Around 100 people attended. I would like to place on record my thanks to the football club for letting me hold the event free of charge.” Garry Parcell.

• Sheila Rioch took part in the CRY Durham Riverside Walk 2010 and raised just under £100.

• Ben Rockett raised £6,280.06,

through online fundraising, in respect of the Land’s End to John O’Groats and Back cycle ride on 21 to 27 August 2010.

• Graeme Parkin took part in the CRY Durham Riverside Walk 2010 and raised £244.

“I set out from Land’s End at 9.00am on Saturday, August 21st 2010. Before me were 1800 miles of British roads, set to take me from Land’s End to John O’Groats AND BACK to Land’s End. I had heard about the one way record previously, but I was more interested when I heard about the return record.

In April 2000, Bob Brown (www.bobbysrun.co.uk) set the record at 6 days and 20 hours. That record had remained unbeaten for a decade.

I set out from Land’s End on that morning with the hope of returning in six days, but I knew that within those 1800 miles lay many challenges for myself and the 8 person support team that I had on the road with me.

The weather was far from helpful, with a stiff headwind and heavy rain for the majority of the route. As luck would have it, the turn around point at John O’Groats saw the wind do the same, so I was battling the elements far more than I had hoped.

Covering 420 miles in the first 24 hour period, and 320 miles every 24 hours thereafter - and under the watchful eyes of the 7000 strong followers at any one time on www.rockettrides. com - I made it to the Lake District with just one day under the wheels.

• Preston Swimming Club sponsored swim - Sunday 26th

September. Julie Smith sent in a donation of £3,390 from the Preston Swimming Club event on 26 September. £400 of this donation represents her son Chris’ open water swim at Ullswater. “In March 2009 Chris attended one of your screenings at Myerscough College organised by the Lowe Family, he was diagnosed with a heart condition. After a full screening and a bank of tests Dr Sanjay Sharma diagnosed Chris with Wolff-ParkinsonWhite syndrome. In November 2009, Chris underwent catheter ablation surgery and in February 2010 he was told the WPW was no longer present. We will be forever grateful to your organisation for potentially saving Chris’ life, he could have just been another statistic.” Chris and Julie Smith.

“I entered my first open water swimming event, it was a 1 mile race in Ullswater on Sunday 11th July. I finished 14th overall out of 178 swimmers and 2nd in my

62 • CRY update • Issue 53

www.c-r-y.org.uk


Our

I was set for Scotland almost 10 hours ahead of the planned schedule.

Scotland posed numerous problems, both physically and mentally, none moreso than Glasgow on the Southbound journey.

Having crossed the Erskine Bridge, the support crew were forced to pull me from the bike in order to enforce a period of sleep. I had cycled my body and mind beyond its limits and things were appearing touch and go for whether I would be able to continue.

However, waking from the enforced 1 hour sleep I felt a million times better and I was set to take on the rest of Scotland and return to England.

Through the Midlands I was joined by fellow CRY supporter and Guinness World Record Holder, Clive Middleton, who helped sort out my mental approach and also offered me some highly useful advice for how to guarantee making it back to Land’s End.

He had to dispense this advice between naps - naps which I was taking whilst still pedalling on the bike. With that advice taken on board, I continued in the driving rain and the strong winds to the Severn Bridge and into the West Country. Passing through my home region meant there was a great deal more support en route and I was soon tailed by a healthy number of local club cyclists and cheered through the miles by well-wishers and online followers. I was on target to make it to back to Land’s End ahead of the record and this caused an increase in the number of online followers. I had audiences in South Africa, Guatemala, Brazil, New Zealand, Australia, Russia, USA and all across Europe. The following was growing mile by mile and thankfully so were the donations to CRY. Five days and 21 hours after setting off, I arrived at Land’s End.

After a long night riding through Devon and then Cornwall on the lonely and empty A30, the final ten miles were cycled at 30 mph, draining every last drop of energy in my body.

I was met by a wonderful group of well-wishers and supporters - many of whom had been there through the night, following us along the A30 and congregating in all the lay-bys on the way down.

www.c-r-y.org.uk

Fundraisers

Finishing the ride meant an end to the mental angst of beating the record, but it by no means meant an end to the physical troubles that I had been experiencing.

It is now 6 weeks since the completion of the ride, and I am sat here with many problems still waiting to heal.

While I am already planning the next big venture, I do so with crossed fingers that all the ailments from this ride will heal and just be part of the whole memory.” Ben Rockett.

• We have received a donation of £250 in respect of Ben Rockett’s Bike Ride Lands End to John O’Groats.

• “I’m very pleased to inform you that the committee of St Mary’s

Church agreed to make CRY one of their charitable-giving recipients for the proceeds from the parking for the 2010 Wimbledon Tennis fortnight.” David Drummond, Committee member, St Mary’s Church, Wimbledon.

• Jackie Saunders took part in the CRY Heart of London

Bridges Walk 2010 and raised a further £20 through online fundraising making a total raised of £130.

• Roger Scott (Weyward Singers) held a choral concert on 22 October 2010 and raised £628.

• Floris Shoebridge made a further donation

of £350 in respect of the Skydive, making the total raised to date £640.

• Neil Simpson raised £750, through online fundraising, after completing the BUPA Great Manchester Run.

• The Sobell Foundation donated £5,000 for the purchase of Holter monitors.

• Team Step by Step took part in the CRY Heart of London Bridges Walk 2010 and raised a further £190 through online fundraising making a total raised of £996. Team Step by Step were Helena Alexander, Terry Alexander, Alan Chamberlain and Clare Chamberlain.

• The Sue Rigby Guitar Academy held a show at the Locker Room on 2 October and raised £1,180.

• “It gives me pleasure to send this donation of £194.50 for the CRY charity. It was collected by donations for coffee over a period of time. I do hope it helps a little in as much as getting check-ups for young people.” Christine Tabberer.

• Isabel Thomas did the 2010 Great East Swim around Alton Water and raised £185.

• Gary Thomson raised £125, through online fundraising, in respect of the London 10k Run and the Tough Guy competition.

CRY update • Issue 53 • 63


Our

Fundraisers We were very upset to learn of Chris’ death just a few short months after he had completed the huge accomplishment of his channel swim for CRY. He died in a tragic accident in France in December 2010. We are very grateful for Chris’ fundraising efforts and our thoughts are with all those who loved him. Swimming across the channel is a mighty achievement and Chris has not sought in any way to draw attention to the amount of time and effort he must have put into this. To choose CRY as the beneficiary, without any specific connection, is something we will always remember.

“Please find enclosed a cheque for £2,256.76 which I raised for CRY by raising sponsorship for swimming the English Channel last September. On 21 September 2010, I started the swim at 7:55am with perfect weather conditions. There was next to no swell or wind and the sun was just coming up. The sea temperature was between 16 and 17 degrees, which when compared to a regular swimming pool (28 degrees or so) is relatively cold, but as open water swimming goes, is relatively pleasant! There were at least 3 other boats leaving before me taking other channel swim attempts across. One was a relay and I believe two were solo attempts. They all started between 5 and 20 minutes before me. For those of you who know me well, you’ll know I can’t resist a little bit of competition! Within the 1st hour I had overtaken all of the other boats! I ended up around 20 minutes ahead of the nearest boat! The swim started well, and it wasn’t long before my 1st feed after 45 minutes. I was feeling good, not cold… yet! For me the next few hours were relatively uneventful, although I could hear a strange clicking under the water every now and then, which I later heard from my support crew was porpoises playing and following me! I also heard that there were fish jumping around me for quite a while, although I didn’t see any of this, I was far too focused on the swimming! I got a little shock during the swim when I heard a very loud engine, moving very fast and it was very close! I looked around and saw it was a low flying plane (and I mean, very low flying!), which had been sent out to take photos of some of the channel swim attempts that were going on that day! By four hours into the swim my arms were sore, but I knew that they were ok, and I hadn’t started to get too cold yet! I managed to keep all of my feeding times reasonably short, between 15 and 40 seconds to take in all of the fluid and eat a jaffa cake, banana or swiss roll! Keeping the feeding times down was important as the longer the feeds are, the longer it takes to make it across and the colder you get as you tread water.

64 • CRY update • Issue 53

At 6 hours my friend and training partner, Kat Baker, jumped in to join me for a half hour swim alongside me to keep me company and boost my moral. Her first comment as she jumped in was “it’s cold!” By the 6 hour mark I was getting a little chilly but coping. My arms were a little more sore, but again I was still OK. I first saw France at about 6 and a half hours. It was a welcome sight, but I knew it was still a long way off! By 10 hours, France was starting to look a little closer and Kat jumped in again for another half an hour swim alongside me. It was getting towards twilight by this time so the light sticks I was wearing were starting to come in useful! I was told that we weren’t going to head towards the closest part of France that I had been looking at for ages as the tides were wrong and if I had tried to swim that way I would have never got there as I would have had to work against the tide. So I was swimming along parallel to the coast, a very frustrating experience! As it got darker I could see the lighthouse towards which I was heading, at least I knew the end was in sight! As I got closer to shore, the dingy was launched to follow me in as it was getting too shallow for the boat. I swam and landed on the rocks at 8:40 pm, giving me a time of 12 hours and 45 minutes for the crossing. After landing I had to swim back to the dingy, and after being hauled aboard, the dingy made its way back to the boat where I was greeted by an excited support crew. Once on board I got wrapped up in many towels, sleeping bags and survival blankets! On the journey back to Dover I was too exhausted to feel exhilarated by the fact that I had just swum all the way from England to France, and it is only really starting to sink in now! I would like to thank everyone who has helped me to train, been there to support me and generally offered me encouragement. It really has meant a lot and without it I don’t think it would ever have been as possible as it was. I would also like to thank everyone who has sponsored me for their generosity, it is hugely appreciated and going to a very worthy cause.” Chris Walsh

www.c-r-y.org.uk


Our

Fundraisers

• Nick Trim took part in the HSBC Triathlon on 12 April and raised £130.

• Uppingham Congregational Church held a coffee morning on 11 September and raised £119.54.

• Waitrose, Bracknell, sent in a donation of £240 from their Community Matters scheme.

• Mrs B I Warren sent in a donation of £250. • Mrs Pat Watkins sent in a donation of £100. • “Please find enclosed a cheque for £230. This money was raised

especially from 6000m up(!), and the people absolutely inspirational.

at an annual darts tournament at the Wheel of Fortune Public House in Alpington playing for the Bob Baldwin Memorial Cup. The money raised was from the entrance fees and by holding a raffle. A great evening was had by everyone and at the same time raising money for a great cause.” Christine Bloomfield.

• Claire Wilson sent in a donation of £100 in respect of the Vietnam Open Cycle Ride 2010.

Very friendly and happy and we never tired of the children running out of their homes to wave and shout ‘hello’ to us as we cycled past.

The most wonderful way to really see the country and meet the people as they live their daily lives.” Claire Wilson. Claire was one of three CRY riders who tackled the Vietnam Cycle Ride for CRY, the others being Dale Thomas and Anthony Chapman.

“I had a fantastic time in Vietnam, the best thing I have ever done.

An extremely physical and emotionally demanding challenge but the most rewarding too.

• David Worlidge raised £360, through online fundraising, in

I was lucky to be with an inspiring and really fun group who helped to make it the best experience of my life.

• Jacqueline Yardley took part in the Run to the Beat half

respect of the Deloitte Ride across Britain. marathon and raised £130.

The team spirit and determination was so strong that it spurred everyone on to complete the long uphill trek.

The country was wonderful - breathtaking scenery,

Headline page index

Page 70 Paramedic is off to Parliament Derby Evening Telegraph 09.10.10

Page 66 Dozens ride in memory of teenage cycle star

Page 70 Parents sponsor tests that could have saved Tom Ealing Gazette 22.10.10

Yorkshire Evening Post 06.09.10

Page 70 Rallying CRY for BUPA 10K Pure Genius (the Magazine for Calor people) Summer 2010

Page 66 Tributes for cop who died on US break Birmingham Mail 11.09.10

Page 66 Pixie’s a Lott of help for young victims The Huddersfield

Page 71 Man from Croxley Green runs Berlin Watford Observer 19.10.10

Page 71 Pixie Lott turns it up for heart charity Third Sector 19.10.10

Daily Examiner 21.10.10

Page 66 Annual two day Motorcycle Trials School at Hartland Launceston,

Page 71 Shifting sand pays off as nine-day desert trek ends

Holsworthy, Bude & Stratton Journal Gazette 08.10.10

Page 67 I will climb Kilimanjaro for Grandpa and my pal Leanne

Gloucestershire Echo 03.12.10

Herald Express (Torquay) 01.12.10

Page 72 Cash for heart screening campaign Hartlepool Mail 29.10.10 Page 72 Heart testing saved my life Lancashire Evening Post 25.09.10

Page 67 Singing star backs charity Hartlepool Mail 22.10.10

Page 72 Father issues cardiac screening appeal Ulster Gazette 21.10.10

Page 67 Kind and gentle teen remembered Richmond & Twickenham Times 03.09.10

Page 73 MP is backing Pixie East Anglian Daily Times 16.10.10

Page 68 Camogie girls support CRY Coleraine Times 15.09.10

Page 73 A sweet tribute to memory of ex-pupil Sunderland Echo 30.12.10

Page 68 Healthy Heart Supplement in The Independent 16.09.10

Page 73 In memory of Marcus Colchester Gazette 25.10.10

Page 68 Pupils get a different kind of test at school Colchester Gazette 09.12.10

Page 73 Region’s MPs joins forces with singer Pixie The Northern Echo 16.10.10

Page 69 Father’s trek in memory of son Malton & Pickering Mercury 01.09.10

Page 73 Get yourselves screened South Wales Echo 12.11.10

Page 69 We’re trying to make sure Jonathan didn’t die for nothing

Page 74 Skydive bid to be closer to pal Shaun Biggs Reading Post 23.09.10

Teesside Evening Gazette 14.09.10

Page 74 Auction boosts Sarah’s fund Leicester Mercury 09.12.10

Page 69 Dad has head shaved in son Shaun’s memory Reading Post 28.10.10

www.c-r-y.org.uk

CRY update • Issue 53 • 65


Fundraising Events 2011 Please contact Becci, Ben or Laura on 01737 363222 or e-mail events@c-r-y.org.uk if you are interested in a CRY charity place for any of the following events, have your ‘own place’ and would like to fundraise for CRY or would like to run in a heart costume. For more information and a full list of events in 2011, visit www.c-r-y.org.uk/upcoming_events.htm All CRY participants (whether you have your own place or a CRY charity place) for the following events will receive a fundraising pack containing sponsor forms, information and helpful tips and a t-shirt.

A few ideas... Just Walk 2011 South Downs, 7 May

Bupa Great North Run 18 September

This fundraising walk is open to anyone who is keen to get their walking boots on and hike for charity - you can choose 10km, 20km, 40km or 60km routes over the picturesque South Downs in West Sussex, so something for everybody. Please see June events at www.c-r-y.org.uk/upcoming_events.htm for more information or to register.

CRY has a limited number of charity places every year for the Great North Run. Due to the popularity of this event, demand always exceeds the number of places we are allocated, so please register your interest as early as possible to ensure your greatest chance for a charity place. We also need local volunteers to help out at this event.

DO IT FOR CHARITY Super Heroes London 5km Run / Walk

Run to the Beat Music Half Marathon

London, 8 May Over 1,000 ‘Super Heroes’ are expected to take part in this event, raising over £100,000 for charities. Free Super Hero outfit for all that enter! To become a Super Hero for the day e-mail ben@c-r-y.org.uk or call Ben on 01737 363222 for more information. The spirit of the event is ‘taking part not winning’ so you can run, jog or walk.

London-Paris Bike Ride 11-15 May, 22-26 June, 6-10 July, 10-14 August, 31 August-4 September, or 14-18 September Starting in London, the 4 days of cycling will take you through beautiful and historical villages, and allow you to see some of the most famous landmarks in England and France.

Bupa London 10,000 30 May CRY has a number of charity places for this event, so would welcome individuals and teams who wish to enter, along with any ‘own place’ runners who would like to run for CRY.

Great North Swim, Lake Windermere

25 September CRY has a number of charity places for this popular London event, and we also welcome any ‘own place’ runners who would like to run for CRY. You can apply for your ‘own place’ at www.runtothebeat.co.uk.

CRY Durham Riverside Walk 8 October To launch CRY Awareness Week, the 2nd 7km CRY Durham Walk will be held in the beautiful Wear valley, following the river, with views of the city and cathedral. Please e-mail events@c-r-y.org.uk if you are interested in taking part.

CRY Awareness Week 8 to 16 October If you would like to be involved in CRY Awareness Week 2011 please email ben@c-r-y.org.uk

Royal Parks Half Marathon 9 October CRY has a limited number of charity places for this event, and would welcome ‘own place’ runners.

18 & 19 June

Bupa Great South Run

For the first time CRY has a limited number of charity places for the 1 mile event and we also welcome any ‘own place’ swimmers who would like to take part for CRY. To apply for your own place visit www.greatswim.org/Events/.

30 October CRY does not have any charity places for this event, but would welcome ‘own place’ runners. Apply for your ‘own place’ at www.greatrun.org/Events.

CRY Heart of London Bridges Walk

6 November

17 July This year will mark the 5th annual CRY Bridges Walk. This event will once again start at Victoria Embankment Gardens and finish at Hays Galleria, near London Bridge, after crossing Golden Jubilee, Westminster, Waterloo, Blackfriars, Millennium, London and Tower Bridges and passing at least 12 famous London landmarks, representing the 12 young sudden cardiac deaths that occur each week in the UK. Register online at www.c-r-y.org.uk/bridges_walk_2011.htm. We are always looking for volunteers to help with this event, without whom we simply would not be able to run it. To find out more or to offer your time on the day please e-mail events@c-r-y.org.uk.

Adidas Women’s 5k Challenge London, 11 September CRY does not have any charity places for this event, but if you apply for your own place and let us know we can provide you with a CRY T-shirt to wear, plus sponsor forms and other fundraising items. If you nominate CRY, we will receive £5 of the entry fee. Please visit www.womenschallenge.co.uk.

www.c-r-y.org.uk

New York City Marathon CRY has a limited number of charity places for this event and we also welcome any ‘own place’ runners who would like to run for CRY. You can apply for your ‘own place’ at www.ingnycmarathon.org/entrantinfo/ apply.htm.

DO IT FOR CHARITY Santa Run 5km Run / Walk Greenwich Park, London, 4 December and Heaton Park, Manchester, 11 December Over 2,000 ‘Santas’ are expected to take part in each of these events, raising over £200,000 for charities. Free Santa outfit for all that enter! CRY has places for these events. To book your place send an e-mail to ben@c-r-y.org.uk or call Ben on 01737 363 222 for more information. The spirit of the event is ‘taking part not winning’ so you can run, jog or walk.

Parachute Jumps Assorted dates For further details, please visit www.c-r-y.org.uk/parachute_Jump.htm

CRY update • Issue 53 • 75


Cardiac Risk in the Young Head Office: Unit 7, Epsom Downs Metro Centre, Waterfield, Tadworth, Surrey KT20 5LR Tel: 01737 363222 Fax: 01737 363444 E-mail: cry@c-r-y.org.uk

Our Mission When Cardiac Risk in the Young (CRY) was founded in 1995 it was the first organisation to draw attention to the range of conditions that can cause young sudden cardiac death (YSCD). These include arrhythmogenic right ventricular cardiomyopathy (ARVC) and other abnormalities leading to sudden arrhythmic death syndrome (SADS). Every week in the UK at least 12 apparently fit and healthy young people die of undiagnosed heart conditions. CRY aims to reduce the frequency of YSCD by working with cardiologists and family doctors to establish good practice and appropriate screening facilities to promote and protect the cardiac health of our young. CRY believes cardiac screening should be accessible to all young

www.c-r-y.org.uk

people aged between 14 and 35. CRY also works to guide and support families and close friends affected by YSCD. The Charity aims to put them in touch with people who have the appropriate knowledge and experience to answer their questions. We provide information to explain what the coroner does, practical guidelines to help with NHS referrals and advice on the procedures that usually follow a YSCD. In addition, CRY publishes a range of medical information written by leading cardiologists that is easy to understand and made available to the public free of charge. Detailed information about cardiac abnormalities and the range of literature available from CRY can be found on our website at www.c-r-y.org.uk/medical_conditions.htm

Our Patrons The urgency of CRY’s mission and the quality of our work has compelled many high profile personalities to give their time to become Patrons of our Charity. Current Patrons of CRY: Rob Andrew MBE, John Barrowman Jeremy Bates, Ben Brown, Mark Carruthers, Clive Clarke, Mark Cox MBE, James Cracknell OBE, Nick Easter, Jonny Evans, Simon Halliday, Kathryn Harries, Michael Hoey, John Inverdale, Pat Jennings OBE KSG, Robert Jones MBE, Gary Longwell, Pixie Lott, Emily Maitlis, Graeme McDowell MBE, Professor W J McKenna, Bill Neely, Phil Packer MBE, Sir Steve Redgrave CBE, Andy Scott, Roger Taylor MBE, Professor Gaetano Thiene, Gregor Townsend MBE, Andrew Triggs-Hodge MBE, David Walliams, Matt Wells, Ray Wilkins MBE and Sir Clive Woodward OBE.

Sir Ian Botham OBE

Honorary President of CRY “It is not just athletes who are at risk of these heart disorders – it can happen to anyone. The problem has been swept under the carpet for too long and there have been too many excuses. I am a parent and a grandparent and I want to know that my kids and grandkids will be screened as a matter of course. It’s the only way we can prevent these sudden deaths occurring.” To read the supportive quotes from CRY’s Patrons in full please go to www.c-r-y.org.uk/patrons.htm

Our Fundraisers The involvement of our fundraisers has been crucial to helping CRY raise awareness about YSCD. By fundraising for CRY our supporters have, in addition to highlighting our cause, helped to finance and develop our Bereavement Support service, the CRY Centre for Cardiac Pathology (CRY CCP) at Royal Brompton Hospital, the CRY Centre for Inherited Cardiovascular Conditions and Sports Cardiology at St. George’s Hospital and the CRY myheart Network to support young people living with potentially lethal cardiac conditions. CRY has also required funding to support medical research into YSCD, to subsidise and expand our national screening programme, our education programme and our campaign for ECG testing of the nation’s youth. Whether you are carrying out your own activity or taking part in an organised event such as the Virgin London Marathon or the BUPA Great North Run, remember that CRY will always support your effort with posters, literature, sponsor forms and other resources.

To read the supportive quotes from CRY’s Patrons in full please go to www.c-r-y.org.uk/patrons.htm

If you would like to join our fundraisers, CRY also offers a range of free fundraising challenge events, including parachute jumps, white water rafting and a selection of trekking and cycling events. For more information visit www.c-r-y.org.uk/free_ fundraising_events.htm or contact the CRY office to request a fundraising ideas pack. There are many different ways you can donate to CRY. Online and cheque donations are the most popular methods, and we can also accept credit card donations over the phone. For further information telephone 01737 363222 or go to: www.c-r-y.org.uk/donate.htm All your help is greatly appreciated.

CRY is always extremely grateful for grants or donations from Trusts and Foundations. We would like to thank the following Trusts and Foundations for the very generous support they have given us: ABBA Trust • Albert Hunt Trust • Artie White Foundation • Aspen Insurance UK Charity Committee • Biggart Trust • Charlotte Marshall Charitable Trust • Sir Cliff Richard Charitable Trust • Edward Joseph Colclough Trust • Fitton Trust • The Freemasons’ Grand Charity • Gordon Fraser Charitable Trust • Gwyneth Forrester Trust • Hasluck Charitable Trust • Holbeck Charitable Trust • Hospital Saturday Fund Charitable Trust • James Tudor Foundation • Malcolm Chick Charity • Miss W E Lawrence 1973 Settlement • Munro Charitable Trust • Muriel Edith Rickman Trust • Pharsalia Charitable Trust • The Sobell Foundation • Shuttlewood Clarke Foundation • Sir James Roll Charitable Trust • Sir Jules Thorn Charitable Trust • Tudor Foundation, Inc.

Profile for Cardiac Risk in the Young

CRY Update Magazine - Issue 53  

CRY’s quarterly update magazine with news and information about the charity and our supporters. Registered Charity 1050845. Some pages have...

CRY Update Magazine - Issue 53  

CRY’s quarterly update magazine with news and information about the charity and our supporters. Registered Charity 1050845. Some pages have...