CRY Update Magazine Issue 80

News and Events | Raising Awareness | Our Fundraisers

Update 80 | September to December 2019

In this

CRY Conference 2019

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Great North Run 2019

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CRY Heart of Durham Walk 2019

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CRY Great Cake Bake 2019

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Tel: 01737 363222 Fax: 01737 363444 Email: cry@c-r-y.org.uk

Visit our websites: www.c-r-y.org.uk www.sads.org.uk

CardiacRiskintheYoung CardiacRiskintheYoung @CRY_UK

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Newsletter

CRY Update 80 September to December 2019

Inside Update 80

Editor Dr Steven Cox

Chief Executive

Deputy Editor Tom West

Newsletter Editor As Deputy Editor of the CRY Update it is my responsibility to put together this newsletter, and ambition that you find all the CRY news, events and fundraising in these pages to be of interest.

I always endeavour to ensure the information printed in this newsletter is accurate, but please do not hesitate to get in touch with me if you notice something amiss. CRY receives an incredible amount of support and I know occasionally an error will slip through, however any fundraising corrections will be clearly demarcated at the beginning of the subsequent issue’s fundraising section.

I would appreciate hearing from you at tom@c-r-y.org.uk or on 01737 363222 if you have any feedback or comments regarding previous issues. Thank you for your help.

Contributors Alison Cox MBE Founder Professor Mary Sheppard Consultant Cardiac Pathologist Head Office:

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Unit 1140B The Axis Centre Cleeve Road Leatherhead KT22 7RD No part of this publication may be reproduced, stored in a retrieval system or transmitted in any form or by any means; electronic, mechanical, photocopying, recording or otherwise, without prior permission of the Editor.

The Editor welcomes letters but reserves the right to edit when necessary and to withhold publication. Any opinion or statement by the author of any article or letter published does not necessarily represent the opinion of Cardiac Risk in the Young (CRY). Articles pertaining to health-related topics are for information only. Readers should obtain advice from their own practitioner before attempting to diagnose or administer any medication. Mention of any products or procedure should not be considered an endorsement for said product or procedure.

Meet Our Representative News from the Chief Executive CRY Online CRY Centre for Cardiac Pathology (CRY CCP) Report CRY Screening Report CRY receives funding from Tesco Centenary Grant Alison’s Column CRY Conference 2019 Great North Run 2019 CRY Heart of Durham Walk 2019 CRY Great Cake Bake 2019 Our Fundraisers Raising Awareness in the Media Report Fundraising Events 2020

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For more details regarding the events shown on the cover, please turn to the corresponding page references below. Images are listed clockwise from top left: 1. Walkers at the CRY Heart of Durham Walk 2019.

Page 24.

2. Supporters at a family fun day event held in memory of Lewin Hodgins. Page 60.

3. Runners taking part in the Finsbury Park 5k and 10k run in memory of Alex Hubbard. Page 62.

4. An annual cricket tournament held in memory of Nathan Butler. Page 42.

Submission guidelines: We include activities in the “Our Fundraisers” section that raise £100 or more.

Entries appear in the “Our Fundraisers” section according to when CRY sends official receipt of monies raised.

If you can supply a writeup or photos for any fundraising activities you have taken part in, please email tom@c-r-y.org.uk.

Images of CRY Patrons and Members of Parliament throughout have been highlighted in red.

5. The unveiling of CRY’s new echocardiogram machine. Page 6.

6. Supporters taking part in the Cardiff Half Marathon in memory of Dean Fletcher. Page 53.

7. CRY Consultant Cardiologist Professor Sanjay Sharma at the CRY Conference 2019. Page 20.

8. Supporters raising awareness for CRY’s participation in the Tesco Bags of Help Centenary Grant. Page 17.

9. CRY runners at the Great North Run 2019. Page 22.

10. The Cycle4Tom event held in memory of Thomas Demaine. Page 49.

11. Issy Coke completing a sky dive in memory of India Hedley. Page 59.

12. CRY supporters completing an Everest Base Camp trek in memory of Louise Worth. Page 90.

13. Chris Embling with Coronation Street actor Colson Smith at a CRY screening event held in memory of Rory Embling. Page 4.

Copyright © 2020 Cardiac Risk in the Young. Registered Charity No. 1050845 A Company Limited by Guarantee. Registered in England No. 3052985 Registered Office: Unit 1140B The Axis Centre, Cleeve Road, Leatherhead, KT22 7RD

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Issue 80 | September to December 2019

Meet Our Representative

Sian Donnelly Representative in Bromley

my options, I opted very quickly to be fitted with an ICD (Implantable Cardiac Defibrillator).

I suppose my ‘story’ starts in 2004.

Since Adam’s death and my subsequent surgeries, as a family we have dedicated ourselves to raising money for CRY and for awareness of undiagnosed heart conditions.

The last thing I want is for another family to go through what we have been through.

We were a few days in to a family holiday when my fit and healthy 17-year-old brother collapsed and died. Following two post mortems (one in Cyprus, and one in the UK) the coroner ruled his death as SADS (sudden adult death syndrome).

How can a 17-year-old’s heart just stop? No warning, no symptoms – it was too difficult to comprehend.

This is where CRY came in, and the reality set in that we were not alone. At the time, statistically, 8 fit and healthy young people died each week – this is now 12.

Not only did CRY help me and my family with counselling and answering so many questions we had, they crucially suggested we were screened as a family for any underlying heart conditions.

A family testing day at Lewisham hospital concluded that my mum had Brugada syndrome – the likely cause of Adam’s death. As I was only 13 at the time, I was told to just go for annual checks but everything looked ‘normal’.

In 2010, after 5 years of ‘normal’ results, an ajmaline test showed that I too have Brugada syndrome. Normal ECG, normal echo – serious heart condition. After listening to

www.c-r-y.org.uk

I am so passionate about the work CRY does and try to help in any way possible.

This includes attending myheart meetings for people diagnosed with heart conditions, speaking at local schools, and funding screenings.

In our community alone I know of three people of similar age to me that have since been diagnosed and treated for a condition they didn’t know they had from a CRY mobile screening!

Seeing the charity grow in the last 15 years and the work they tirelessly carry out to raise awareness is the reason I am so proud to be a Representative for such a great cause.

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News from the Chief Executive Dr Steven Cox

CRY Chief Executive

@Drstevenjcox drstevenjcox Thank you for everything that you continue to do to support CRY and raise awareness within your local communities. Included in this section are a number of media stories from September to December, as well as information about some of CRY’s events in this period.

September

ITV News segment on screening in memory Alex Reid September 14

CRY responds to the NSC’s latest consultation September 6

Heather Reid has been supporting CRY since the sudden death of her daughter, Alex, seven years ago when Alex was just 16 years old. Heather has raised money to fund screenings to test the hearts of young people in her local area, and ITV News covered the fifth year that a screening was held in memory of Alex at her old school.

In September, CRY responded to the National Screening Committee’s (NSC) consultation regarding systematic population screening. We would like to thank all CRY supporters who submitted their personal responses to the NSC. In December, the NSC published its conclusion to the consultation, reconfirming that the UK NSC does not recommend systematic population screening for cardiac conditions associated with young sudden cardiac death. To read CRY’s responses to the initial consultation and the conclusion, turn to page 10.

50 runners represent CRY in Great North Run September 8 Thank you to the 50 runners who took part in the 2019 Simplyhealth Great North Run for CRY. It’s great to see us being so well represented at the world’s biggest half marathon. You can read a full write-up of the day and see photos of our runners on page 18.

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“Our screening events, like the one we’re holding today, can potentially save young lives,” said cardiologist Dr Lisa Leung. “It’s just a very simple heart trace and medical based questionnaire, and all of this does make a difference to young people and their families and community.”

CRY’s screening programme continues to grow every year because of supporters like Heather who raise vital funds to make these events possible. It’s terrific to raise awareness through coverage like this as well, ensuring as many people as possible hear about the importance of being screened.

Coronation Street’s Colson Smith supports CRY screening September 15 Colson Smith, who plays Craig Tinker on ITV’s Coronation Street, was a great friend of Rory Embling, who died suddenly in May 2014 from a previously undiagnosed heart condition. They both grew up with a shared passion for Leeds United football club and were involved with Castleford Cricket Club, where the screening event on September 15 was held.

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News from the Chief Executive Colson attended to offer his support, as well as join around 100 other young people to be screened himself.

Rory’s dad, Chris Embling, said: “We are delighted that Colson – fondly known as Craig to so many of us Corrie fans in Yorkshire and across the UK – is so publicly lending his support Chris Embling with Colson Smith to our weekend of screening, as well as taking the wise decision, as a 21 year old, to be screened himself... He came along to our fundraising football match last weekend, which we were so grateful for, but much of the fantastic support and encouragement he gives to us goes on behind the scenes too!”

I would like to say an enormous thank you to everyone involved with Rory’s Foundation – especially Colson, on this occasion! – for supporting our screening programme and helping us to make expert cardiac testing more accessible to young people both in Yorkshire and throughout the UK.

October

always an important opportunity for supporters to meet with other bereaved families and friends, or to walk in support of a young person who is living with a cardiac condition.

Thank you to everyone who came to take part in the walk, and to all of our amazing volunteers who helped the event run so well.

You can read a full write-up of the event on page 20.

The 2019 CRY Conference October 18 Yet again, the annual CRY Conference served as an excellent platform for experts to connect and discuss new research.

Several leading international cardiologists attended to share their expertise, including Professor Matts Borjesson, Professor Antonio Pelliccia and Professor Domenico Corrado. Along with the research discussed by some of the CRY team – including Professor Mary Sheppard, Professor Sanjay Sharma, and myheart cardiologist Dr Michael Papadakis – there were many insightful presentations.

To read about the day in detail, turn to page 16.

CRY Heart of Durham Walk October 5 2019 was a particularly special year for this event, as it was the 10th year since our first walk in Durham. It’s

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Daily Express begins awareness campaign October 25 CRY continued to receive increased support as our 25th year (2020) approached. This includes the Daily Express introducing a new campaign to raise awareness of young sudden cardiac death and the work of CRY. The Express published several articles for their campaign. They

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News from the Chief Executive completed interviews with CRY supporters who have lost children to young sudden cardiac death, and attended CRY screening events.

This included an article published on October 25 about Graham and Anne Hunter, who lost their daughter, Claire Reed, when she was just 22 years old. Mims Davies, who used to be the MP from their constituency in Eastleigh, has been supporting CRY since learning of the Hunters’ story, and spoke at our 2018 Parliamentary Reception.

The Express also spoke with Heather Reid, who lost her 16-year-old daughter, Alex, and England Cricket captain Joe Root, who was a friend of Alex. You can read this article online here: https://bit.ly/38lKKoe Thank you to the Express for helping us raise valuable awareness about young sudden cardiac death and the importance of cardiac screening.

November CRY’s latest myheart meeting November 16 The autumn myheart meeting was held on Saturday, 16th November at Friends House, Euston. It was facilitated by cardiac nurses Polly Castelo and Katie Frampton.

The nurses’ session was followed by a session from former ICD and Pacing Manager, St George’s, Sue Jones.

The last session was kindly facilitated by former CRY Research Fellow Dr Sabiha Gati.

10 myheart members registered for this meeting.

Donna Faulkner interview on BBC Three Counties November 18 During CRY’s Raising Awareness week, Donna Faulkner shared her story on BBC Three Counties to inform listeners of the incidence of young sudden cardiac death and the impact it has all around the UK. Donna’s son, Harry, collapsed during a squash tournament and tragically died. Donna was asked about

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Donna Faulkner with CRY Research Fellow Dr Bashar Ibrahim and CRY Ambassador Ben Coleman, unveiling a new echo machine for CRY funded in memory of Harry.

the phone call she received to let her know Harry had collapsed. “It haunts me every day of my life,” she said.

“Every day without fail. I remember that call like it was yesterday, and any mum or dad that’s gone through it will know exactly how I feel.”

Donna mentioned the screening that she’s completed, hosted at Berkhamsted School, in Harry’s memory.

“What’s astonishing is that out of the 1,021 children I’ve screened to date, 31 of them have had to go on for further investigation… One very close friend, her daughter is a diver, and she had a condition that she was not aware of.”

As 80 percent of young sudden cardiac deaths occur with no prior symptoms, screenings are absolutely essential in ensuring people with conditions aren’t missed.

As Donna explained, Harry was seemingly healthy and had no symptoms. “No condition, no symptoms, and it happened – he was playing squash, of course, a sport that is a powerful game and we had no idea. And that’s scary. And that’s why I want mums and dads and nans and grandads to go onto the CRY website, register, get your children screened. It costs you nothing. The government doesn’t pay for this – it’s families likes ours that raise money and friends of ours that raise money so we can go ahead and screen.”

Thanks to the tireless efforts of Donna and Harry’s family and friends, they were able to raise enough money to pay for a new echocardiogram (echo) machine in Harry’s memory in November.

Whether testing young adults (in a community setting) with no symptoms and literally no idea if they may be at risk from a hidden heart condition, or families going through extensive testing and assessment at our

Issue 80 | September to December 2019

News from the Chief Executive specialist referral centre at St George’s, University of London, we owe it to them to ensure that we are working with the very best equipment available to us.

December

I would like to thank Donna and all of Harry’s family and friends for raising the funds for this amazing new echo machine and helping to enhance CRY’s screening service.

CRY’s 2019 Raising Awareness Week November 18-22 Unfortunately, we had to cancel the 2019 CRY Parliamentary Reception due to it falling in purdah as a result of the December general election.

However, we were still able to make CRY Raising Awareness Week a success in other areas.

Our new poster campaign sparked a high level of engagement from all around the country. We sent out over 350 packs (which included six posters featuring CRY’s key messages and statistics) during Raising Awareness Week. This helped us spread awareness all around the UK, and aided the typical messaging we use on social media.

Lots of supporters engaged with the CRY Great Cake Bake as well. We had over 100 people register for packs to take part. Thank you to everyone for their efforts in the kitchen and in their local communities raising awareness.

You can read a full write-up of this event and see pictures of some of the amazing cakes on page 22.

www.c-r-y.org.uk

CRY end of year message December 19 Every year it is amazing to look back at everything that’s been done by people all around the UK to help save lives, and there were plenty of important developments in 2019.

After raising more money than ever before in 2018, we went even further in 2019, with more than £3.8 million being donated to CRY. Our efforts to establish a national strategy for the prevention of young sudden cardiac deaths received more backing as well, with more than 180 MPs pledging their support earlier in the year.

We also introduced a new event: the CRY Family Research Day. Supporters came from all over the UK to hear talks about what has been achieved with your support since 1995.

Presentations included Professor Sanjay Sharma discussing how our research has transformed the way we screen young people, and Professor Mary Sheppard explaining how CRY has changed the way we understand the causes of young sudden cardiac death over the last 10 years.

Thank you to all of you for everything you’re doing to support CRY and for helping to save young lives.

You can listen to my end of year message and hear more about our progress in 2019 on CRY’s YouTube channel here: https://bit.ly/2tAZXTZ

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CRY Online Social media Social media is a vital part of how CRY interacts with supporters and, first and foremost, raises awareness of young sudden cardiac death and what can be done to tackle it – from preventative measures (screening) to bereavement support for those affected by a tragedy.

In the CRY Online segment, we look back at the fourmonth period the Update covers and include a small selection of social media highlights, such as Facebook posts that reached an amazing amount of people, or supporters who tweeted memorable photos at us.

One of CRY’s highlights from the end of 2019 from a raising awareness standpoint was the awareness campaign launched by the Daily Express. The Express joined CRY to offer their support in spreading word of young sudden cardiac death and what needs to be done to save young lives.

One Facebook post – with an article by The Express featuring the story of Heather Reid’s fundraising efforts for CRY since the sudden death of her daughter, Alex – was shared almost 600 times.

Another fantastic raising awareness tool that got underway for CRY in this period was our poster campaign.

This campaign received a lot of engagement, and partly

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thanks to awareness we were able to spread on social media, we sent out over 350 packs (including six posters of CRY’s key messages) to supporters around the UK. One Facebook post to encourage people to get involved with the campaign received over 200 shares.

Facebook is becoming an increasingly valuable way for us to share CRY’s key messages, stories and developments like those above. Overall through September to December, CRY’s Facebook page recorded 1,314,323 impressions, with our number of ‘likes’ increasing by 986 to reach a total of over 32,300.

Our Instagram page continues to grow as well. This is another great tool for us to share photos and videos about the work of CRY and our supporters, and in this period we were pleased to surpass 5,000 followers.

One of our top Instagram posts, recording almost 300 likes, shared the news of CRY supporter Debbie Dixon receiving a nomination for a Pride of Britain Award. This came as a result of her fundraising efforts to support CRY in memory of her son, Aaron, who died in 2011 when he was just 23 years old. Over £200,000 has been raised in memory of Aaron, funding crucial screening events for young people.

Interacting with us on social media is an easy way to keep up to date with any CRY information you might need. You will receive updates on upcoming events and screenings; and photos from fellow supporters. Every share of a post helps spread awareness about CRY a little further. So, if you’d like to follow along, here’s where you can find us:

CardiacRiskintheYoung CardiacRiskintheYoung @CRY_UK

Issue 80 | September to December 2019

CRY Online

The first tweet, from November 20, shared an infographic illustrating how CRY research has helped reduce the false positive rates of cardiac screening. Increasing the accuracy of ECG screening improves our ability to correctly diagnose conditions and avoid unnecessary further testing to reduce costs.

November was the best month of 2019 for CRY on Twitter, with 290,326 impressions (the number of times a post appears on someone’s personal feed). Engagement with the CRY Great Cake Bake was a big part of this. Nadiya Hussain helped spread the word, as she donated a recipe for a caramelised biscuit tray bake and retweeted our message to her 200,000plus followers to help raise awareness of the Cake Bake and the recipe booklets we offered to all those who wanted to take part.

Back in October, we received some positive awareness through one of our supporters, Margaret Waddell, joining Radio Clyde in Scotland.

Margaret talked about suddenly losing her son, Euan, and why it’s important for all young people to get screened.

www.c-r-y.org.uk

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CRY Online As part of the CRY Online segment we include Facebook posts from Chief Executive Dr Steven Cox (found at drstevenjcox), providing thoughtful responses to news and events from the last few months.

Dr Steven Cox responds to the NSC’s latest consultation 6 September 2019

Here is my full response to the latest consultation document published by the National Screening Committee (NSC) to review the role of screening for the risk of sudden cardiac death in the young: The main conclusion of the NSC Consultation The NSC consultation document does NOT recommend population screening for sudden cardiac death in the young.

Summary of the Cardiac Risk in the Young response to the NSC Consultation document There are many problems with the external review consultation document, raising serious questions about both the process of review and its substantive content. Our main concern is particularly in relation to: • the way in which the NSC appoints reviewers; • the way evidence is evaluated (the criteria for sourcing

and evaluation of evidence);

• the conclusions of the report (inaccurate presentation of

the problem, inaccurate interpretation of evidence and erroneous conclusions as a result of these inaccuracies.

The current response will address the following key concerns: 1. Framing of the consultation 2. The type of evidence sourced 3. The way evidence is interpreted and incidence of young sudden cardiac death (YSCD) is evaluated 4. The way the screening policy is evaluated within the context of other established clinical procedures 5. The way the content is presented, in particular how the problem is initially introduced in the Plain English summary.

1. Framing of the consultation The way the policy is framed is incorrect. This policy is framed as screening for the risk of sudden cardiac death, while other screening programmes endorsed or being evaluated by the NSC are focused on detection of conditions (or risk markers).

For example: • Cervical cancer screening in adults

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• Foetal anomaly screening in pregnant women • Prostate cancer screening in adults • Stomach cancer screening in adults • Familial hypercholesterolemia screening in children • NHS Abdominal Aortic Aneurysm Screening Programme

The difference is crucial because this consultation document repeats on a number of occasions that screening results in a significant proportion of people identified which will result in “overtreatment”. The evidence shows there are many management pathways from treatment and lifestyle advice to surgery which can reduce the risk of suffering a cardiac arrest/sudden cardiac death once a condition has been identified. Furthermore, early identification of some cardiac conditions can result in monitoring, and intervention when necessary, in order to avoid serious cardiac complications in the 4th and 5th decade of life at a point when the cardiac condition results in symptoms (e.g. breathlessness) due to cardiac damage/adaptation.

The story of England Lioness Jade Moore is an example of a young person who was screened (in 2007) and went on to have corrective surgery, after which she returned to sport at the highest level. In 2019 she competed for England during the World Cup. In the case of the NSC endorsed NHS abdominal aortic aneurysm (AAA) screening programme, individuals will be identified with aortic aneurysms which will be at risk of rupturing and causing death. Cardiac screening in young people has the potential to identify an aorta which is at risk of rupturing and causing death in a similar way to a 65-yearold man within the NSC endorsed programme.

CRY recommendation: The framing of this issue should be consistent with the other NSC policies, “screening for cardiac conditions in young adults”.

2. The type of evidence sourced Another point that needs to be addressed is the NSC concern regarding the type of evidence which is informing clinical practice.

The NSC is requesting for Randomised Controlled Trials to be conducted. This is UNETHICAL and would lead to young people dying in the pursuit of “better” science.

The NSC has stated that there is an absence of protocols informing how to treat asymptomatic individuals with these conditions. This is incorrect because there are established protocols/recommendations from international scientific bodies. A prime example is an asymptomatic individual with Long QT syndrome and a QTc of 500, where something as simple as a beta blocker can reduce their risk of SCD significantly and that is why beta blockers are recommended in those individuals. The second point which contradicts the NSC position is that something as simple

Issue 80 | September to December 2019

CRY Online as lifestyle advice or monitoring has the potential to save lives. High risk patients with HCM or ARVC are routinely identified in the NHS Inherited Cardiac Condition (ICC) clinics and once they are identified they can be reviewed on a regular basis, reassessing their risk and intervening when necessary. If the argument stands that clinicians have no idea what to do with asymptomatic individuals with inherited cardiac conditions, then the entire model of ICC clinics and screening relatives and cascade genetic screening falls apart. These programmes are endorsed by the NHS, Department of Health, and Public Health England, as well as heart charities like the British Heart Foundation.

3. The way evidence is interpreted and incidence of young sudden cardiac death (YSCD) is evaluated A key issue in understanding the impact of screening is understanding (and correctly interpreting) the incidence of young sudden cardiac death.

Whilst young sudden cardiac death has been acknowledged by the NSC as meeting their criteria for “severity” they have said it does not meet the criteria for “incidence”. The NSC document states, “There continues to be uncertainty as to the true incidence of SCD, although most studies in the general population reported an incidence of between 1 and 2 cases per 100,000 person-years.”

• Qualitative characterisation of the stated incidence as

“low” is inaccurate when compared to other risks of death of the young

The key research by Papadakis et al, 2009 reported an incidence of 1.8 deaths per 100,000 people per year in the UK, in line with the NSC’s estimates. This equates with 12 young sudden cardiac deaths per week – more than 600 young sudden cardiac deaths per year in the UK. The NSC refers to this as “low incidence”. However, sudden cardiac death is one of the most common causes of death in young people, the most common cause of death in young athletes, and has a massive impact on family, friends and local communities and is associated with numerous decades of lost life years. The qualitative interpretation of incidence should therefore be contextualised to young people, when its incidence is high in comparison to other risks of dying of the young, such as leukaemia, etc.

• Lack of transparency about evidence used for estimation

of incidence

In the light of the lack of clarity about the way incidence estimation is to be framed and characterised, and the evident misunderstanding of the problem manifest in the NSC policy document, CRY made a request (on 31st October 2018) to meet with the NSC and/or the epidemiologist appointed by Public Health England, in order to provide guidance and clarity to the policy documents.

This request was rejected.

www.c-r-y.org.uk

The need for greater transparency about the estimation of incidence in order to provide clarity for the process of policy making is essential, as exemplified in the recent parliamentary question, asked on 19 June 2019: “To ask the Secretary of State for Health and Social Care, whether his Department has made an estimate of the number of 14-year-olds today that will die from a sudden cardiac death before they reach their 36th birthday.”

The response stated: “The information is not available in the requested format. The chances of sudden heart attacks in apparently physically fit young people are extremely small. The overwhelming majority of heart attacks happen in elderly people.”

This response demonstrates that the way in which summary of evidence (based on NSC) is subsequently interpreted by policy makers is essential for any future policy. A lack of understanding of the evidence informing the incidence and impact of young sudden cardiac death is exemplified through: 1. The use of arbitrary terms such as “extremely small” which fail to contextualise the incidence to young people.

The impact of the death of a young person with 60 years of life ahead of them cannot be compared to the death of an 80-year-old. It is unacceptable to compare young sudden cardiac death (from congenital/genetic/inherited conditions) to heart attacks in elderly people.

2. The use of the term “heart attack”. The correct term is “sudden cardiac arrest”.

The inability to provide an informed answer to this simple question demonstrates an expert has not engaged in a meaningful way with the evidence, either because they do not understand the data or they have made a conscious decision to be evasive.

• Inconsistent interpretation of evidence informing

incidence estimation

In this consultation document they have highlighted the importance of presenting absolute values for young sudden cardiac deaths when available. However, they applied this rule inconsistently, e.g. they failed to do this when presenting the data in a recent paper published in the New England Journal of Medicine (which can be read at https://bit.ly/39PJQ48). In this paper it can be seen that 1 in 1,396 footballers died of cardiac conditions (8 deaths out of 11,168 footballers over a 20 year period) after being screened at the age of 16. In this study 42 of the footballers were identified with potentially life-threatening conditions and treated. 2 of these knew they had heart conditions and died after they continued to play sport. 6 of the players died having been cleared at the age of 16. The fact that they may have developed the conditions after the initial screening

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CRY Online at 16 has led to more regular screening for elite athletes.

Had there been no screening in this group the incidence of young sudden cardiac death is likely to have been significantly more than 1 in 1,396.

CRY recommendation: A request has been made by CRY to the NSC to provide the incidence figures for all the conditions where the NSC currently supports a policy of screening in the UK. The request was to provide this: • in the format which the authors of this report have used for latest review of screening to prevent SCD, i.e. number of deaths per 100,000 people per year, and • for the non screened groups and the screened groups for each of the conditions.

Whilst the NSC have agreed to produce this information, it had not been provided by the date of this submission (6th September 2019) and therefore it is not possible to compare this incident data (in the format of deaths per year) with other conditions where the NSC has agreed the criteria for incidence has been met. CRY urge the NSC to provide this information and to allow transparent, open and accurate risk estimation and risk comparison.

4. The way the screening policy is evaluated within the context of other established clinical procedures During the 2014 consultation CRY raised concerns that the screening policy did not reflect the current routine, accepted practices carried out within NHS. In particular this related to the way the 2014 report contradicted Department of Health (DoH) information, NICE guidelines and the NSF chapter 8.

This report has once again failed to evaluate the overlap between the current routine use of the ECG in the NHS/ medical practice for general diagnostics and monitoring and its role in cardiac screening. This is of fundamental importance because the NSC continue to conclude that “criteria 4: There should be a simple, safe, precise and validated screening test” is not met.

CRY’s specific concern is in relation to:

conditions that do not present with symptoms. The key issue here – and it has been well established in the academic literature when comparing the screening model endorsed by the American Heart Association which is focused on symptoms – compared to the European Society of Cardiology model which also incorporates an ECG, is the evaluation of symptoms alone in the context of predicting cardiac disease is unreliable. The way in which different people experience symptoms and report symptoms is highly variable, equally the way a doctor then interprets the individual’s experience of symptoms is highly variable. The result of the subjective interpretation of symptoms by the individual and then the doctor means some symptoms may be considered arbitrary and misattributed to other causes like stress and anxiety. This was the case of Charlotte Carney. After a CRY screening Charlotte was identified with a very serious condition and has now had a heart transplant.

Most young people will, at some point in time, experience some form of symptom like breathlessness, palpitations, passing out, dizziness and/or chest pain – if they report these symptoms to their GP, it can be an arbitrary decision whether the GP offers them an ECG or not.

• Failure to understand the role of the ECG to detect young

people with cardiac conditions in routine health checks and screening programmes

The NSC states that “the test [ECG] for SCD was safe, but is not accurate”. However, it is already used routinely in screening programmes for commercial pilots, army recruits, pre-operation surgery, sport (international events/ competitions), and pharmaceutical drugs trials.

Aviation medical exam (https://bit.ly/2VnJBs7) Every candidate must obtain Class I and Class II medical fitness certifications in order to become a commercial pilot.

First class medical certificate requirements include checks of eyesight, ears, physical examination, electrocardiogram (ECG), lung function, cholesterol blood, hemoglobin blood, chest X-ray, urine, period of validity.

• The contradictory position of the NSC where the ECG IS

Army pre-selection assessment (https://bit.ly/2UQL4ba) The ECG is one of the medical tests which is part of a full assessment to check a person is healthy enough to take part, and to join the Army.

The NSC currently recommends people with symptoms like breathlessness to go to their GP for evaluation. But it must be pointed out an initial test often used to determine if a symptom is caused by a cardiac condition is an ECG. Similarly with young people who experience an episode of passing out, affecting >30% of the population, the ECG is the most important test and part of NICE guidelines (Note 1.1.2.2 https://bit.ly/2V9eQqx).

Pre-op assessment prior to surgery (https://bit.ly/39RiFpI) If a person is aged over 16 years and about to have planned (also called ‘elective’) surgery, they may be offered an ECG depending on health status. Every person having major surgery is likely to be offered an ECG.

It is therefore unclear why the same test should be considered an inaccurate test when detecting cardiac

For instance, WPW is one of the most common conditions identified in the CRY screening programme, affecting

an accurate test if you experience symptoms, but the ECG IS NOT an accurate test if you DO NOT experience symptoms.

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• NSC Consultation document contradicts the information

on the NHS choices website

Issue 80 | September to December 2019

CRY Online more than 1 in 700 young people. The NHS states, “it may only be picked up when an ECG is carried out for another reason. In these cases, further tests will be done to determine if treatment is required… with treatment, the condition can normally be completely cured… WPW syndrome can sometimes be life-threatening… and treatment can eliminate this risk”. The latest ESC guidelines on the management of supraventricular tachycardia, which were reported at the 2019 ESC Congress, suggest that a WPW ECG pattern is an indication for electrophysiological studies in high risk population such as young athletes.

Similar information can be found on other NHS pages for Long QT, Brugada, and cardiomyopathies.

The fact the ECG does not identify every young person at risk of suffering a cardiac arrest does not mean it is NOT an accurate test as the National Screening committee have stated. It is one of the most useful tests used in cardiology.

When an ECG is used as a screening tool it will identify the majority of cardiac conditions that affect young people.

1 in 300 people screened will be identified with cardiac conditions which could potentially be life threatening. Once identified these conditions can be treated and sometimes cured. These treatments and operations are routinely provided on the NHS for people once they are identified with the cardiac conditions.

5. The way the content is presented, in particular how the problem is initially introduced in the Plain English summary The plain English summary (page 5-6) is one of the most important sections and needs to be simple but accurate.

Yet from the onset it is littered with inaccuracies, and the specific semantics used fail to address the seriousness of the issue of young sudden cardiac death: • Inaccurate understanding of the problem

The summary states incorrectly: “the way this [Screening] might work is by identifying heart conditions at an early stage before they cause symptoms”. The screening is carried out to prevent a potential cardiac arrest which will usually occur in the absence of symptoms, not before symptoms present. This is just one of the occasions where the authors have failed to understand the issue they have been appointed to evaluate.

The final line of the plain English summary on page 6 states: “However, before researchers can do a research trial of screening, there is a need for accurate screening tests and clear guidelines to enable clinicians to treat patients that have a disease, but do not have symptoms.” This statement shows disconcerting ignorance both of many routine screening programmes already implemented within the UK and abroad, as well as a lack of understanding of routine clinical practice within NHS cardiology departments.

www.c-r-y.org.uk

• Lack of full appreciation of the context within which the

policy is being evaluated

The opening of the second paragraph states, “Screening has been proposed by some people as a way to prevent sudden cardiac death..” The use of the phrase “proposed by some people” to connote policies endorsed by the European Society of Cardiology, governing bodies including FIFA and the International Olympic Association, the UK armed forces, aviation authorities indicates a lack of appreciation of the national and international stakeholder context within which the policy is taking place.

• The Summary document does not build on the latest

evidence

This latest review builds on the evidence since 2014, without addressing the shortcomings and criticism raised in the previous NSC 2014 consultation. The Summary references the 2014 NSC report and its conclusions justified by 3 bullet points, but fails to acknowledge and incorporate the most recent evidence that has addressed and repudiated the conclusions from the NSC 2014 consultation. The Summary document highlights the general tone of the authors throughout the document, exemplifying a subjective position they have taken to the screening debate.

CRY recommendation: The document must be submitted to the acknowledged experts in the field to amend and correct the inaccuracies within the document before it is finalised in order to ensure its veracity, objectivity and credibility.

Conclusion The concerns raised within this response do not constitute a critical appraisal of the entire document. There are many additional issues which could be raised which further undermine the conclusions of this report. This response should be treated alongside the previous response in 2014, as the concerns raised during the 2014 consultation have not been addressed in this document. Whilst we welcome the NSC finally acknowledging that “Sudden cardiac death in the young is an important health problem”, we urge the Committee to attend to many inaccuracies, biases and inconsistencies contained within this report. It is essential that the Committee develops a transparent and open process through which the issue will be framed, evidence sourced, evaluation criteria determined, data and evidence interpreted and final conclusions made. CRY and its associated expert cardiologists call upon the NSC to engage in mutually open and constructive dialogue to ensure that the document is a credible source of information for policy makers. The sooner the policy in the UK reflects the most up to date and strongest evidence, the sooner our country will be able to save young lives and ensure fewer families are devastated by these avoidable tragedies.

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CRY Online Dr Steven Cox responds to the NSC’s consultation conclusion December 2019

“Just prior to Christmas Day, the UK NSC published its conclusion to the consultation, reconfirming the UK NSC does not recommend systematic population screening for cardiac conditions associated with Sudden Cardiac Death in the young.

No signs or symptoms “The first point to address is that, as a charity driven by a mission to prevent young sudden cardiac death through proactive screening and research, we completely disagree with the repeated concerns raised about the accuracy of the ECG (electrocardiogram) test. As CRY has previously highlighted, the 12-lead ECG test is currently recognised by experts worldwide as the ‘gold standard’ test for identifying cardiac abnormalities and signposting a need for further investigations such as echocardiogram scanning, MRI and genetic testing. It is a routine, first line test when a doctor is concerned about a patient’s heart.

The reality is this is usually only offered to older people.

Again, we ask, why should young, apparently fit and healthy young people, who may be harbouring a hidden heart defect, not have access to the same, simple and inexpensive lifesaving test? And, whilst the report goes on to imply that testing in sport – and when symptoms are present – is warranted, the NSC has not been explicit about this. It goes without saying that CRY believes ALL young people should have the opportunity to be screened, because the majority of young sudden cardiac deaths are not in elite athletes and in 80% of the tragedies there are no signs or symptoms. All too often, the first sign that anything is wrong will be the last sign.

Grey area “The conclusion of the NSC also contradicts what is already routine practice within the NHS, as we raised during the consultation. The perception patients have of their symptoms and how this is interpreted by a GP is rarely clear cut. Many people will fall into a grey area where symptoms (e.g. breathlessness, blackouts) are easily dismissed by GPs partly because they are so common, and GPs do not have the resources or training to enable every person with symptoms to be tested.

The current position of the NSC to encourage all people experiencing symptoms to go to their GPs for investigation is therefore not viable in practice and it is unreasonable to expect GPs to be able to read ECGs to the same standard as a specialist cardiologist.

Underestimation “Throughout the consultation, we were frustrated that the NSC was not willing to meet with CRY to discuss the concerns we had raised about the apparent understanding (or, misunderstanding) of the incidence of young sudden cardiac death. Thanks to 10 years of funding of the CRY 14

Centre for Cardiac Pathology (at a cost of £1,000,000) the vast majority of SADS deaths are now investigated at the Centre, giving CRY a unique insight into how many families are affected by young sudden cardiac death. It appears the NSC is underestimating the incidence of young sudden cardiac death by at least 10-fold, and almost 100-fold for high risk groups. We believe this fundamental misunderstanding of the epidemiological data of how many people are affected is central to why they are still referring to this as ‘very rare’ and ‘tiny’ when compared to heart attacks in the elderly. Young sudden cardiac death is one of the most common causes of death in young people and the most common cause of death in young athletes. It is unacceptable to continue to frame the issue in this way.

Informed decision “Whilst we were very disappointed the NSC was not willing to meet during the consultation to discuss the major concerns we had about the way they had misunderstood the incidence, we have been reassured that now the consultation is over they have agreed to meet with us and we will be able to address this issue. We trust they will advise how they would like to present the pathology research data held by CRY to ensure the policy in the UK is informed on a sound scientific basis. #MPsupport4CRY “CRY will continue to engage MPs in our campaign to establish a national strategy to prevent young sudden cardiac deaths. This is important to ensure all policies in the UK are consistent and we hope the key recommendations from the recent review of adult screening programmes (October 2019) will be taken on board to enable this, establishing a single advisor body bringing together the UKNSC and NICE. However, the first key issue is for a national strategy to correctly establish the accurate incidence of young sudden cardiac death.

As long as this is underestimated the government will underinvest in research, underestimate the impact young sudden cardiac deaths have on communities throughout the UK, and fail to recognise the cost-effective tools we already have that could prevent these tragedies.

Unacceptable “2020 is CRY’s 25th anniversary year. 25 years ago, CRY was established to prevent young sudden cardiac deaths through screening and research. It is unacceptable for a progressive society to turn its back on 600 young deaths every year and the horrendous impact it has on every family, friend and local community. It is unacceptable to leave it up to the bereaved families to raise the funds to provide the research and resources that are so important to save young lives. CRY will not accept the suggestion that these tragedies are unavoidable. We will continue to screen more young people and invest more than ever before into research to prevent young deaths.”

Through research, we will change policy.

Through screening, we will save young lives.

Issue 80 | September to December 2019

CRY Centre for Cardiac Pathology (CRY CCP) Report

By Professor Mary Sheppard

Professor Mary Sheppard, Consultant Cardiac Pathologist

Susanna Cooper, Laboratory Technician Khari Edwards, Laboratory Technician

Causes of death

The CRY Centre for Cardiac Pathology is a national referral centre for the pathological investigation of young sudden death with an established national database.

September to December 2019

We had 163 heart cases from September to December 2019. The total number of hearts for 2019 was 547, as well as 283 spleen. Causes of death were given in all cases. Our database forms a valuable source of research within St George’s clinical cardiology team resulting in publications in high impact journals. We are also increasingly getting splenic tissue for genetic testing, as genetic analysis combined with clinical follow-up will give valuable information in the future for families.

We were able to make a diagnosis of the cardiac cause of death in all cases, with the majority being sudden adult death or cardiomyopathies (75% of cases), all of which are important for family screening.

2019’s publications included: • “Insights from examination of hearts from adults dying

suddenly to the understanding of congenital cardiac malformations.” Westaby JD, Cooper STE, Edwards KA et al. Clinical Anatomy.

• “Sudden Cardiac Death in Hypertensive Patients.”

Westaby JD, Sheppard MN. Hypertension.

• “Idiopathic Myocardial Fibrosis in Captive Chimpanzees (Pan troglodytes).” Strong V, Moittie S, Sheppard MN at al. Veterinary Pathology.

• “Next-generation sequencing using microfluidic PCR enrichment for molecular autopsy.” Raju H, Ware JS, Skinner JR et al. BMC Cardiovascular Disorders.

• “Sudden Death and Left Ventricular Involvement in Arrhythmogenic Cardiomyopathy.” Miles C, Finocchiaro G, Papadakis M et al. Circulation.

• “Myocardial Inflammation in Brugada Syndrome.” Miles C, Asimaki A, Behr ER, Sheppard MN. Journal of the American College of Cardiology.

• “Diagnosis of myocardial infarction at autopsy: AECVP reappraisal in the light of the current clinical classification.” Michaud K, Basso C, d’Amati G et al.

Invited lectures • 18 October 2019 – Lecture on

arrhythmogenic right ventricular cardiomyopathy at the CRY Conference.

• 22 October 2019 – Lecture on

sudden death natural or unnatural at St Mary’s University London –

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Association for European Cardiovascular Pathology: Virchows Archiv: an international journal of pathology.

• “Defining Commotio Cordis.” Maron BJ, Sheppard CS. American Journal of Cardiology.

• “Histological Evidence for Impaired Myocardial Perfusion Reserve in Severe Aortic Stenosis.” Mahmod M, Chan K, Raman B et al. JACC: Cardiovascular Imaging.

• “Sudden Death Can Be the First Manifestation of Hypertrophic Cardiomyopathy: Data From a United Kingdom Pathology Registry.” Finocchiaro G, Papadakis M, Tanzarella G et al. JACC: Clinical Electrophysiology.

• “Anomalous Coronary Artery Origin and Sudden Cardiac Death: Clinical and Pathological Insights From a National Pathology Registry.” Finocchiaro G, Behr ER, Tanzarella G et al. JACC: Clinical Electrophysiology.

• “European recommendations integrating genetic testing into multidisciplinary management of sudden cardiac death.” Fellmann F, van El CG, Charron P et al.

European Journal of Human Genetics.

• “Endocarditis and Sudden Cardiac Death.” Cooper STE, Griffin KJ, Westaby JD, Sheppard MN. Journal of Pathology.

• “A Lethal Blow to the Chest as an Underdiagnosed Cause of Sudden Death in United Kingdom Sports (Football, Cricket, Rugby).” Cooper S, Woodford NW, Maron BJ et al. American Journal of Cardiology.

London MSC in Forensic Science.

• 26 October 2019 – The

Barts London – MSc in Forensic Science.

Resuscitation Science Symposium, • 15 November 2019 – Lecture on Barts London – Lecture on Sudden the brain heart axis, discussion Cardiac death in Athletes. in neurocardiogenic syndromes – America Heart Association, • 12 November 2019 – Lecture on Philadelphia, USA. Cardiac Pathology and Cardiac deaths at St Mary’s University,

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CRY Screening Report Between September and December 2019 CRY screened over 10,100 people 687 people were screened at our National Screening Centre at St George’s Hospital, London, funded by donations from the Carval Foundation, Union of Catholic Mothers, Chrimes Family Charitable Trust, The Kendrick and Sylvia Edwards Charitable Trust, the Shanly Foundation, Thomas Cook, the Aubrey Orchard Lisle Trust, and in memory of Amy Osborne.

586 athletes were screened at sports screenings, including: Loughborough EIS, Bath EIS, RFU Womens U20s, White Lodge Richmond Park, Lawn Tennis Association, AFC Wimbledon, England Womens Cricket, Bedford & Ampthill Championship Rugby Clubs, Coventry Championship Rugby, Huddersfield Giants RFL, Team Ineos Cycling, RFL London Broncos & London Skolars, and Salford Red Devils Rugby League.

7,165 people were screened at family screenings held in memory of: Andrew Macleod (Isle of Lewis), Daniel Hughes (Halmerend), Yasmin Caldera (Cosham), Andrew Murch and Michael Yorston (Aberfeldy), Lewis Marsh (Sandhurst), Alex Reid (Sheffield), Rory Embling (Castleford), Kyle Hancock (Hope Valley), Bethany Mycroft (Clowne), Robert Poysor (Bewdley), Joseph Halliwell (Stockport), Freya Dalrymple (Orkney), Dale TennentButler (Kings Langley), Craig Lunt (Isle of

Man), Martyn Luckett (Abbotsham), Jamie Loncaster (North Ferriby), Christopher and Steve Philips (Stafford), George Watson (Derby), Ben Daniels (Chislehurst), Andrew Parr (Preston), Charlotte Adams (Maldon), Isabelle Tudisca (Woodford Green), Ben Daniels (Bromley), Oliver Thompson (Exeter, Chadderton), Charlie Craig (Hayfield), Charlie Ibrahimi (Teddington), Amy Osborne (Thirsk), Euan Campbell (Glasgow), Mike Clarke (Northwich), Carli Lansley (Leigh-on-Sea), Jake Dean (Stoke-on-Trent), David Moss (Stoke-on-Trent), Ceri Palmer née Howells (Crewe), Aaron Dixon (Northwich and Leeds), Tom Clabburn and Claire Prosser (Ealing), Michael Land (York), Matthew Dewhirst (Nantwich), Paul Sheridan (Buxton), Daniel Hughes (Stoke-on-Trent), James Nicholas (St Helens), Gemma Quew (Ryde), Matthew Hesmondhalgh (Garstang), Lee Wilson (Elburton), Anthony Fitzgerald (London), Harry Faulkner (Berkhamsted), Owen Morris (Llanrumney), Ben Birch (Wokingham), Thomas Demaine (Bodmin), Harry Dubois (Altrincham), Zoe Teale (Dudley), and Richard Brember (Bracknell).

993 people were screened at 10 school screenings, including: Tring Park School, Hope Valley College, Rugby School, Taunton School, Reed’s School, Trent College, Sedbergh School Medical Centre, Bexleyheath Academy, Cheltenham Ladies College, and The Lea Primary School & Nursery.

714 people were screened at five further screenings, held at: Coleraine Rugby Club; Ulster Bank; BHP Chartered Accountants, funded by The Daniel Wilkinson Foundation; Tír na nÓg GAA Club, Northern Ireland; Richmond Rugby.

CRY’s new echo machine CRY has added an impressive new echocardiogram

What happens at a screening?

The basic test is an electrocardiogram (ECG) which is a simple non-invasive and painless test that examines the electrical activity within the heart.

Small stickers are placed at strategic points on the chest, arms and legs. Flexible leads (called electrodes) that extend from the ECG machine are then attached to these stickers. The electrical rhythm of the heart is recorded and printed out. This part of the process only takes two to three minutes to perform. The ECG printout is then reviewed by a doctor in conjunction with a personal and family history questionnaire.

If a more detailed image is needed (about 5–10% of individuals), an echocardiogram can be taken – this is similar to the ultrasound scan that is used for a pregnant woman to check the health of her baby.

Soundwaves echo against various parts of the heart and they are recorded on a screen.

This provides a detailed picture of the heart’s structure and how well it is functioning.

This takes about 30 minutes to perform.

The screening programme is under the aegis of Professor Sanjay Sharma.

(the Vivid™iq, developed by GE Healthcare) to its portfolio of screening equipment used on a daily basis by its team of experts – all thanks to funds raised in memory Harry Faulkner. Harry from St Albans collapsed and died whilst playing his beloved game, squash (in a league match at Berkhamsted Squash Club), in February 2013 from a previously undiagnosed heart condition. He was aged just 18. “An echo machine is a vital piece of equipment that plays a crucial role assessing those at risk, as well as supporting our research programmes,” Professor Sanjay Sharma said. “Any new additions and upgrades to our machines mean we can be assured of providing the most accurate and up-to-date testing for the thousands of young people who come to us to be tested every year – whether elite, professional athletes or members of the community who have been identified with potential cardiac problems.”

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Issue 80 | September to December 2019

Tesco Bags of Help Centenary Grant

CRY receives £165,000 from Tesco Bags of Help Centenary Grant CRY were bidding to bag a massive cash boost from the Tesco Bags of Help Centenary Grant initiative. To celebrate Tesco’s Centenary, the supermarket teamed up with Groundwork to deliver a special voting round of its community funding scheme to see grants of £25,000, £15,000 and £10,000 awarded to community projects.

and the £165,000 grant will go towards cardiac screening for people aged 14-35 in these regional areas. The grants will not only be a fantastic contribution towards CRY’s screening programme, but the awareness of being on the boxes placed in all Tesco stores in these regions is invaluable.

CRY was one of three groups that were shortlisted in 10 different regions across the UK to receive the cash award, and we are proud to announce that CRY will be receiving £165,000 as part of the initiative! We would like to thank all of those who engaged in raising awareness of CRY’s part in the initiative and everyone who voted for us.

“This is fantastic, what an end to this amazing campaign – and what a great start to our 25th anniversary year (2020)!” CRY Chief Executive Dr Steven Cox said.

Here are the results for each region: East Anglia – 1st Place: £25,000 East Midlands – 1st Place: £25,000 West Midlands – 1st Place: £25,000 Greater Manchester – 2nd Place: £15,000 Mid and West Wales – 2nd Place: £15,000 North West – 2nd Place: £15,000 South London – 2nd Place: £15,000 Cornwall – 3rd Place: £10,000 Highland & Islands/North East Scotland – 3rd Place: £10,000 • South Yorkshire & Lincolnshire – 3rd Place: £10,000 • • • • • • • • •

Voting was open in all 900 Tesco stores across these areas for the three months between July and September,

www.c-r-y.org.uk

“We were so honoured to have been invited to be a part of this incredible community-based initiative, the Tesco Bags of Help Centenary Grant, and overwhelmed by the news that CRY will receive £165,000 to help fund screenings across the UK – all thanks to the support of Tesco shoppers who voted for us with their tokens. This will pay for around 3,300 young people from 10 different regions, to be offered free cardiac screening. Research shows that one in every 300 of the young people that CRY tests, will be identified with a potentially life- threatening condition.

“Many CRY supporters and families affected by young sudden cardiac death have really got behind this campaign too, spending their spare time in various Tesco stores across the UK, talking to shoppers about the work and services that CRY funds to help prevent these tragedies. So, this initiative has been a wonderful opportunity to raise awareness as well as funds.”

Once again thank you to all of those that voted for us, and a big thank you for all of our supporters that held awareness stands in their local Tesco stores.

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Alison’s Column Looking back at CRY’s history through 25 years As CRY celebrates its 25th year anniversary in 2020, CRY Founder Alison Cox will use her Update column to look back at key parts of CRY’s history to show how the charity has developed and got to where it is today.

Alison Cox MBE CRY Founder

How I first learned about cardiac conditions in young people After one year at a tennis orientated Texas High School and a second at a small university, my son Steve, now CRY’s Chief Executive, felt he was more than ready to move to the massive university in Missouri that had offered him a full tennis scholarship.

He was surprised when he was told that all 2,000 new scholarship athletes needed to have an ECG taken at the hospital which was on the boundary of the university.

It was explained that these tests were mandatory as one of them had recently died suddenly of a heart condition that he was not aware he had.

However, the ECG re-test indicated severe cardiac abnormalities and was immediately followed by a range of increasingly sophisticated tests, which resulted in having an emergency biopsy and angiogram in the half term break.

This was followed by the cardiologist walking into the waiting room and casually saying that, in his view, Steve should never raise a sweat again.

When I finally managed to speak to the cardiologist on the phone to try and understand the condition that he had diagnosed, he dismissed me because “it was not my business – Steve was 18 and an adult and could discuss it with me if he chose to.”

Steve was ordered not to play tennis again on campus, and was abruptly warned that his scholarship would terminate at the end of the academic year. He was absolutely devastated and found the cardiologist’s diagnosis difficult to come to terms with as he felt so fit and healthy. The head tennis coach couldn’t help him when he went to visit him at his digs. Nor did he see the cardiologist again.

Steve still had not had the condition that he was diagnosed with explained to him. This changed when a kind local doctor called Fernando Caverro (who was a keen tennis player) heard about what had happened and took it upon himself to take Steve under his wing.

He had sacrificed any academic ambitions for his tennis career and his worst fear now was that he could not stay in the US to complete his degree and would not be accepted by a UK university. He decided to concentrate on his imminent end of year exams.

I was advised to urgently acquire a UCCA form and decided to complete it myself, including writing his personal statement. I did not want to interrupt him, so made all decisions about which university to apply for, where in the country he wanted to go, and most importantly of all, which subjects he might want to study. He had been at a business school studying accountancy, so I included a range of different subjects in his applications.

Princess Diana visiting Bisham Abbey, where Steve (second left) trained

He was unperturbed when he was told that his first set of results suggested that the machine was broken, and the technicians needed to get another machine to re-test him.

He had trained hard during the summer and at the prematch tennis trials was considered by the other players to be the fittest there.

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He returned to the UK and our family doctor immediately found the top professor in cardiomyopathy and the whole family was screened before Christmas with the professor wanting to do further tests on Steve. He said he had never seen such an enlarged heart in a living young person.

Meanwhile, two massively uplifting things happened.

Steve received excellent exam results, and, whilst most universities were not interested in him as he left to the US at 15 and had not done A levels, one UK University wanted to immediately interview him.

Issue 80 | September to December 2019

Alison’s Column At the interview, the university lecturer asked Steve to sit down and tell him what had happened. As Steve finished he firmly said, “this is not about us wanting you, Steve. It is about whether you want to be with us,” and went on to offer him a place to study a degree in Applied Psychology and Sociology,

coaches were alerted to the skipathon and we found that they welcomed the possibility of their ‘charges’ being inspired to get fitter through their skipping endeavours. After the skipathon deadline was closed, I created a list of the first 50 skippers who then personally selected their chosen prize in order of their place in the queue!

It is a moment I will never forget.

One particularly enthusiastic skipper so enjoyed competing in the skipathon that she entered twice and conspicuously found her name twice near the top of the queue! I can still recall how delighted she was with her choice of a super track suit and how courteously she rejected the opportunity of collecting a second prize. She was a terrific girl who matured into one of the best known and most popular British players.

CRY’s skipathon I was frustrated at the lack of information available on cardiomyopathy, which was excused by cardiologists because it was ‘so rare’.

How could anyone determine it was rare if it was not investigated?

So I set my cap on raising funds for a screening machine, as apparently the weekly clinic at St George’s Hospital where we had been tested had to borrow one from another department to examine their (mostly young) patients.

Raising funds could also raise awareness.

I devised a skipathon for junior tennis players, and with the enthusiastic support of the then top tennis player in the country Jeremy Bates and the Director of Junior Tennis Sue Wolstenholme, created a list of 50 prizes.

Skipping results had to be authenticated by an adult on the form we provided, and there was to be no restriction on the number of attempts!

Sue gave me a list of all the organisations that she knew that supported British tennis and I appealed to each one, which resulted in receiving a conglomeration of interesting and generous prizes ranging from a TV to books.

Alison with Jeremy

www.c-r-y.org.uk

The National Indoor Championships came shortly after all this excitement and Sue contacted the coaches to confirm that there was going to be screening available at the championships for their players.

A leading 17-year-old tennis player had recently tragically dropped dead from cardiomyopathy when he stood up to turn on his TV, so it was unsurprising that the response from the coaches was very strong.

Jeremy willingly agreed to be screened on BBC Breakfast, so I bought a badge machine and started punching out hundreds of badges to distribute.

Cardiac Risk in the Young was up and running!

This photo was taken during the 1995 National Indoor Tennis Championships. CRY’s Acuson echo machine had been acquired in 1995 after raising £60,000. By 1996, 2,000 young people had been screened

by CRY. Annette Jones, the Acuson echocardiographer, who was a terrific CRY supporter and had donated her significant bonus to CRY, is in the background.

Sue ensured all the Lawn Tennis Association

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CRY Conference 2019

The CRY Conference was an excellent event yet again, with even more attendees in 2019, as 120 people came to hear experts from around the world present their research After CRY Chief Executive Dr Steven Cox gave his introduction to the day, former CRY Research Fellow Dr Sabiha Gati presented first.

Dr Gati tackled the subject of exercising with aortic and mitral valve disease, and provided some exercise recommendations and precautions for those with bicuspid aortic valve. Dr Gati also examined matters such as the effects of exercise on those with valvular heart disease, how quickly valves deteriorate with exercise, and factors that could signify increased risk.

Next we were pleased to welcome Dr Maite Tome, a Consultant Cardiologist and Honorary Senior Lecturer at St George’s Hospital, London. Dr Tome’s presentation, “Athletes with dilated aorta; When to worry?”, explored how to assess these athletic individuals, the use of genetic testing in these situations, and how elective surgery

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can be a life-saving process.

Dr Guido Pieles followed and spoke about new recommendations for those with congenital heart disease participating in competitive sport. Dr Pieles discussed how new recommendations have introduced an approach to provide individual assessment and risk stratification, giving athletes advice that is better tailored to their condition and the physical strain they are undergoing.

Matts Börjesson joined us from Gothenburg, Sweden, to talk about coronary artery anomalies, with his presentation entitled “Exercise and Coronary Artery Anomalies; Two Incompatible Entities?”. “We can clearly say that there is a strong association between coronary artery anomaly and exercise related death,” Professor Börjesson explained early on.

Professor Elijah Behr from St George’s Hospital spoke about “Risk stratification in athletes with Brugada syndrome – Does it matter?” Professor Behr addressed different methods of risk stratification and their different benefits and limitations.

Professor Antonio Pelliccia kindly joined us again from Italy to give a presentation on “Lateral and inferiorlateral T-Wave inversion: search for

Issue 80 | September to December 2019

CRY Conference 2019 cardiac disease.” Professor Pelliccia had several key takehome messages, including the fact that the detection of T-Wave inversion in athletes should lead to a diagnostic search for underlying cardiomyopathies, with family screening and extensive imaging tests.

CRY Research Fellow Dr Aneil Malhotra followed with a talk on “Significance and evaluation of inferior T-Wave inversion”. Dr Malhotra shared some new research which aimed to investigate the prevalence and significance of inferior T-Wave inversions in large groups of healthy individuals and patients with cardiomyopathy.

As always, CRY Consultant Cardiologist Professor Sanjay Sharma attended to offer his support and expertise. With his presentation entitled “Anterior T-Wave inversion in athletes”, Professor Sharma examined various matters, including the prevalence and determinants of anterior T-Wave inversion in athletes, how the prevalence of T-Wave inversion can vary depending on ethnicity, and which methods can be used to differentiate variants from those who might represent cardiac pathology.

To discuss changes in our understanding of arrhythmogenic right ventricular cardiomyopathy (ARVC), Dr Michael Papadakis gave a presentation entitled “Right ventricular remodelling in athletes: When enough is enough!”.

Dr Papadakis discussed the ground-breaking research completed by Dr Chris Miles during Dr Miles’ time as a CRY Research Fellow. This research (“Sudden Death and Left Ventricular Involvement in Arrhythmogenic Cardiomyopathy.” Miles C, et al. Circulation, 2019) revealed that ARVC is in fact a biventricular disease and often affects the left ventricle.

Professor Mary Sheppard (above) from the CRY Centre for Cardiac Pathology (CRY CCP) followed. Professor Sheppard began her talk, entitled “Arrhythmogenic right ventricular cardiomyopathy; A pathologist’s perspective”, by explaining how she got involved with CRY following the

www.c-r-y.org.uk

misdiagnosis of a case of arrhythmogenic cardiomyopathy.

Professor Sheppard went on to discuss ARVC in detail, and how the CRY CCP and new research has had an impact on the practice used to deal with this condition.

When questioned about ARVC at the end of her talk, Professor Sheppard added that the scientific community should stop using the term ARVC – it is not a purely right ventricular disease, and should just be known as arrhythmogenic cardiomyopathy.

The last presentation of the day, “Arrhythmogenic Right Ventricular Cardiomyopathy; Looking into the future”, came from Professor Domenico Corrado. Professor Corrado looked at current diagnostic criteria for ARVC from the 2010 International Task Force (ITF) and some of its significant limitations that need to be improved.

After all of the presentations were finished, the afternoon was made up of case study sessions. These were panelled

by Professor Sharma, Professor Corrado, Professor Pelliccia, Professor Börjesson, Professor Behr and Dr Tome. The sessions focused on electrical disease, cardiomyopathies and structural disease, and served as a great way to spark discussions to see how different experts would approach various cases.

Finally, former CRY Research Fellow Dr Joyee Basu hosted a quiz in the style of ‘Who Wants To Be A Millionaire’. This was once again an ideal end to the conference. The quiz was only lighthearted, but reinforced what was discussed through the day.

Many thanks must also go to our sponsor Radcliffe Cardiology, and to our exhibitors GE Healthcare, Sanofi, Schiller, MediBioSense, and Abbott.

To watch videos of all the presentations from the 2019 CRY Conference, you can go to our YouTube channel here: https://www.youtube.com/user/cryvideos/videos You can register your interest for the 2020 CRY Conference, due to be held on Friday October 16, here: https://www.c-r-y.org.uk/cry-international-conference/

21

Simplyhealth Great North Run 2019

It was a brilliant event, with the sunshine beaming throughout the day. This led to the atmosphere being even livelier than usual, with over 58,000 participants this year and estimated crowds of over 200,000 spectators.

It was lovely to meet and congratulate the 42 CRY runners who came to visit us at the charity marquee and hand them a CRY medal along with some much needed refreshments.

Jody Barford was, once again, the first CRY runner to finish

in a fantastic time of 01:30:20.

We would like to thank all of the CRY runners’ supporters for coming along and cheering on the CRY team. We know that your cheering would have helped them all get to the finish line.

We welcome any runners that would like to take part in this event next year. If you would like to run for CRY in the 2020 Great North Run on Sunday 13th September, please email your interest to events@c-r-y.org.uk.

Once again, thank you to each and every one of our runners for their fantastic efforts in completing this event and fundraising so generously for CRY. They should all be extremely proud of their wonderful achievement. The CRY team included: Stephen Flintoft (in memory of Mike Scott) | William Torr | Alice Spooner (in memory of Timmy Spooner) | Charlotte Torr | Heather Darby (in memory of Neil Darby) | Emma Johnson (in memory of Jeni and David Paul) | Jody Barford (in memory of Linda Barford) | Robin Beck (in memory of Indi Bachada) | Emma Finlayson (in memory of Bailey Drew) | Ryan Grimshaw (in memory of Neil Darby) | Christopher Schroeter (in memory of Andrew Oliver) | David Mason (in memory of Chris Edwards) | Berni Ryan | Michelle Broadley | Thomas Wilson (in memory of Graeme Harrison) | Nicola McCulloch (in memory of Adam Cooper) | Neerali Pattni | Linda Millership (in memory of Madeline Siddall) | Clare Bugeja (in memory of Matthew Hesmondhalgh) | Abigail Richards (in memory of Michael Richards) | Kathie Rees (in memory of Madeline Siddall) | Victoria Cross, Stephen Jones, David Salzl, Nicola Salzl, Richard Cross, Andrew Rhodes and Adrian Cartwright (in memory of Philip Cross) | Ashley Beaumont-Thomas (in memory of Indi Bachada) | Howard Smith | Lucy Milner (in memory of Allan Horsley) | David Blakeston (in memory of Philip Cross) | Ryan Hall (in memory of Robert Smith) | Joel Burton (in memory of Leyton Cooper) | Rachael Ayre (in memory of Matthew Luke) | Emily Moodey (in memory of Sam Moodey) | Anne Siddall (in memory of Madeline Siddall) | Matt Renshaw | Cat Deeming (in memory of Chris Edwards) | Charlotte West (in memory of James Campbell) | Stephanie Whitfield (in memory of Matthew Luke) | Josh Smith (in memory of Robert Smith) | Gabby Broadhurst (in memory of David Green) | Katy Godwin (in memory of Sophia Forrester) | Daniel Wilson (in memory of Fiona Russell) | Robert Bass (in memory of Kevin Paterson) | Karyn Ashcroft (in memory of Simon and Philomena Beecher) | Katherine Savage (in memory of Sam Moodey) | Kelly Gleadow (in memory of Graeme Bell). Harry Steel took part in the Junior Great North Run (in memory of David White).

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Issue 80 | September to December 2019

Simplyhealth Great North Run 2019

www.c-r-y.org.uk

23

CRY Heart of Durham Walk 2019

219 supporters gathered for the 10th CRY Durham Walk

As always, everything was a real team effort! The event was attended by CRY staff Lily Burke, Hiddy Denizer, Cara MacMillan, Chloe Watson and Rebecca Zouvani. And, thanks to the ongoing co-operation of staff at Durham Amateur Rowing Club, we were able to drop off and set up everything on the Friday night, saving valuable time on the Saturday morning (which is always a very early start for staff and volunteers, with a swift set up required at Durham Amateur Rowing Club and Durham Market Place). Hot drinks and breakfast rolls were served at the Rowing Club for the participants, who started arriving at 9.30am.

Throughout the morning, participants checked in at the registration desk and chatted amongst themselves, looking at the CRY displays and taking “selfies” using CRY’s selfie frames.

2019 was a special year for the CRY Heart of Durham Walk, as it marked 10 years since the first walk in Durham. On Saturday 5th October we were joined by 219 participants (along with their babies, toddlers and dogs in tow!) and as always, it was an emotional sight to see everyone coming together, to walk in memory and support of a young person.

As we waited for everyone to arrive, CRY staff and our loyal photographer, Doug Moody, took photos for the local press. Thanks to our supporters’ amazing willingness to share and talk about their own personal experiences of young sudden cardiac death, the event once again received some local press coverage before and after the event, including an article in the Northern Echo.

The Walk took in iconic sites such as Durham Cathedral and Castle, the River Wear, Durham Town Hall and Market Place, where CRY had a branded marquee with an awareness stand and water station.

The vast majority of people who took part – some for the first time, and others who take part year after year – did so in memory of a young person who they had tragically lost to young sudden cardiac death. This year we had families from several parts of the UK as well as County Durham and Tyne and Wear, including Northumbria, Scotland, London, Manchester, Merseyside, Yorkshire, Derbyshire, Gloucestershire, Cleveland, the Midlands and Cumbria.

We were so lucky that the rain held off, providing a dry day for all those involved. Many local people, along with the walkers, visited the CRY water station. We were very grateful to be based in the heart of the city centre, and for local singer, Ashley Stirling, to be positioned so close to the CRY marquee. Ashley’s performance attracted many visitors and generous donations, creating a really positive atmosphere to help us raise even more awareness!

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They were taking part or volunteering in memory of and in support of: Meghan Adams; Jack Balfour; Christopher George Britton; Steffani Broughton; Andrew James Callender; Stephen Carey; Charlie Craig;

Issue 80 | September to December 2019

CRY Heart of Durham Walk 2019 Tom Day; Ashley Goodwin; Dean Henderson; Dale Holder; Damien Jewell; Eleanor Keeler; Alan Lumley; Stephanie Charlotte McLean; Levon Morland; Grant Munro; James Murgatroyd; Andrew Oliver; Charlotte Orwin; Kevin Paterson; James Pilfold; Christopher Rushton; Robert Daniel Smith; Lewis Stewart; Natalie Stewart, Darren Uscroft; and David White.

Once everyone had checked in, we assembled outside the Rowing Club. The event’s founder, Jeff Morland, welcomed everyone and provided some interesting background to the walk. He then introduced his good friend Steve Percival, who has played a huge part in helping the event go from strength to strength over the years.

Steve thanked the participants, Durham Amateur Rowing Club and volunteers and conveyed some of CRY’s latest news and developments. He highlighted the fact that CRY families have supported the screening of over 210,000 young people since 1995, including the recent CRY screening event in memory of Levon Morland, hosted by Durham Amateur Rowing Club.

Steve also gave out some safety instructions and a few fascinating facts about the figure 10, as this was the 10th year of the Durham Walk! He concluded with a poignant moment by reading out the names of the young people in whose memory people were walking or volunteering before wishing them all a pleasant walk. The walkers then set off with a bottle of water and donated chocolate bars.

They were able to collect more water at the CRY stand in Durham Market Place, manned by CRY staff Rebecca Zouvani and volunteers Dom Exton and Nicki Trewhitt.

First aid cover was provided by ResQ Support.

Each walker was later welcomed back to the Rowing Club, once again, by volunteers Marilyn Robinson and Jean Spence who were unable to take part with their families but wanted to help on the day. Walkers were given a CRY medal and a feedback form and were encouraged to leave a message on the message wall and record their thoughts in the “Today’s Thoughts” book. Durham Amateur Rowing Club once again opened the bar and provided delicious paninis, chilli and chips for CRY staff, volunteers and the walkers on their return.

www.c-r-y.org.uk

As always, we never forget that most of the walkers who participate in the Durham Walk do so for very personal reasons – all of us at CRY appreciate their tremendous effort and courage in taking part. We are also very grateful to the following companies and organisations for their support of this event: • Colin Wilkes, James Wilson and Durham Markets

•

• • • • • • • •

Company Ltd for providing CRY with a free awareness stand in The Market Place, Durham.

Durham Amateur Rowing Club for providing a great venue at a discount, year after year, and to Mark Bell and his team, Graham and John, for making us so welcome and helping with setting up and packing up.

Durham University Cricket Club for allowing us the use of the club’s car park.

Durham Safety Advisory Group and Asset Management Team for approving the route.

Emily Crisps for donating bags of their banana fruit crisps.

Nākd and Trek Wholefoods for donating snack bars.

Radflex for donating chocolate bars. This donation is secured each year by David (Joe) Crow.

SCS for donating towards the cost of the event.

Taylormade Timber for donating towards the cost of the event.

The Rothley Trust for covering the cost of producing the Heart of Durham Walk leaflet.

CRY would also like to thank the local organisers and volunteers for their help: helping to organise the event and attending meetings; obtaining necessary permissions; carrying out a risk assessment; marking the route; promoting the event; pre-event telephone calls and emails; marshalling; assembling walkers’ packs; distributing walk leaflets; registering walkers; manning a stand; handing out water, chocolate bars, medals and feedback forms; and clearing up.

We really couldn’t run an event like this, so far away from the CRY office, without the help of our dedicated volunteers and helpers: Lola Atkinson; David (Joe) Crow; Don Exton; Jim Henderson; Tony Holder; David Jewell; Marie Miller; Jeff Morland; Marianne Mortemore; Wendy Moss; Steve Percival; Marilyn Robinson; Jean Spence; Nicki Trewhitt; John, Graham and Gene from Durham Amateur Rowing Club.

Special thanks, once again, must go to Jeff Morland and Steve Percival, the original instigators of the walk, for helping to organise the event and making it all happen.

25

CRY Great Cake Bake 2019

Thank you to everyone who helped us raise a record-breaking total from the CRY Great Cake Bake!

The eighth annual CRY Great Cake Bake took place on Friday 22nd November 2019, as part of Raising Awareness Week. We would like to say a huge thank you to everybody who took part and for helping to make the event so successful.

part in the CRY Great Cake Bake and for your support of CRY’s campaign. We hope to have you join us for the 2020 event which will be part of our 25th anniversary celebrations!

We are delighted to say that we have raised over £38,000 so far which is a new record-breaking total!

We would also like to thank the wonderful chefs and companies who have so generously supported us this year, the event would not be as successful without their support.

Over 100 people signed up for Great Cake Bake packs and we are really pleased with how the event has continued to grow since its introduction in 2012.

Rainbow Dust kindly donated edible red glitter and red metallic paint for the packs, and it has been great to see these items used to decorate your fantastic cakes!

We are also thrilled with the response to the brand new games and competition sheets that were introduced to the packs in 2019. It is fantastic to see these being used amongst your magnificent bakes in the lovely photographs and write-ups we have received so far.

The Family Building society provided sponsorship for the cake bake once again this year and we are so grateful for their continued support of the event.

Please see stories and photographs of your efforts on the following pages, as well as all our fabulous competition winners.

Thank you once again for taking

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We would also like to say a special thanks to Hamper. com for donating the lovely hamper which is being sent to the winner of the ‘best cake design’ for 2019!

Finally, well done to the winners and runnersup in our competitions for the best cake design and most awareness raised.

Best Cake Design

1st place...

Suzanne Rowan

2nd place...

Sally Openshaw and Vikki Pearce

3rd place...

Theresa Owen

Issue 80 | September to December 2019

CRY Great Cake Bake 2019 Biggest Media Impact

1st place...

Adrian and Amanda Topp, who enlisted support from two local radio stations and local media, and distributed over 2,000 leaflets in their local community.

2nd place...

Graham and Jenny Loncaster, for the awareness they raised in their local community with over 300 people attending their cake bake.

• Katie Alcock and her colleagues at Charles Stanley

raised £235 from their cake bake in memory of Katie’s friend, Mike Ince.

• Anna

Arristodemou and her team at ‘A Cut Above’ salon raised £178.28 from their cake bake (right).

• Lesley Bain raised £419.07 from her cake bake in

memory of David McElhinney.

• Terri Beaumont,

Carolyn Brookes and Tia Louise McDonnell raised £4,464.16 from their cake bake in memory of Kieran Joyce (right):

“Andrea and Carolyn worked together to organise a cake sale along with friends and family at Hereford Butter

www.c-r-y.org.uk

3rd place...

Shelagh Robinson and The Nail Retreat Rugby for the awareness they raised on social media.

Market.

“They baked lots of amazing cakes to sell and raised a wonderful £4,464.16 for CRY.” • Hazel Blackman and her husband, Richard, raised

£1,040.32 at H&S Aviation in Portsmouth in memory of Daniel Blackman.

• Judy and Dennis Brookes

raised £655 from their cake bake at the Plough Pub, in memory of their son, Greg Brookes.

• Katharine Cook raised

£150 from her cake bake in memory of Freya Cox (right).

• Tara Challenor raised

£415 from her cake bake in memory of her sister, Therese Field.

• Sue Fisher and staff

at Mountbatten raised £235 from their cake bake in memory of Sue’s son, Phil Standing (above).

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CRY Great Cake Bake 2019 • Sarah

Gabbitas raised £615 from her cake bake in memory of her sister, Rachel Gabbitas (right).

of local teenager, Jamie Loncaster. As always, there had been many months of pre-planning and promotion of the event. Once again some early ‘save the date’ notices were circulated to the local community via the Swanland Village Association newsletter and the Swanland Parish Magazine.

This was followed by publicity on social media. But as always, word of mouth continues to be a reliable way of spreading the news!

• Rosemary

Goodman raised £1,100 from her cake bake in memory of her son, Alexander Goodman.

• Tom and Judy Green raised £4,381 from their cake

bake in memory of their son, Adam Green.

• Francesca Hobbs and her colleagues at CAA raised

£321.70 from their cake bake in memory of their colleague, Andy Kenny.

• Sarah Jones raised £300 from her cake bake at

Downing Court Sheltered Housing, in memory of Daniel Blackman.

• Alex Joseph raised

£190 from his cake bake at Admiral House in memory of Jack Thomas.

• Morag Knight raised

£50 from her cake bake which took place at a local school (right).

• Amy Ling raised £150

from her cake bake and raffle, for her London Landmarks Half Marathon pledge, in memory of Jack Atkinson (right).

“There were cakes and buns of all shapes, sizes, flavours and colours with varying styles of very professional looking decoration! Family friend and local cake maker Claire Milner once again donated some amazing cakes and boxed muffins for the cake raffle table. Her creations were also joined by a cake from Dave Morford and one from Carly Danby.

“As you’d expect, this cake raffle was yet again a very busy stall and a total of around 500 ticket strips were sold! Huge thanks go to Dave and Rosie Morford, who spent almost the entire time manning the cake raffle table. Needless to say, there were some very happy ticket holders when the phone calls were made following the ticket draw at midday.

“As is now customary, the fundraising event ran from 9am

• Graham and Jenny

Loncaster raised £2,243.12 from their cake bake at St Barnabas Church in memory of their son, Jamie Loncaster:

“On Friday 22nd November 2019, the fifth annual CRY Coffee Morning and Cake Bake fundraising event took place at St. Barnabas Church Hall, Swanland in memory

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Issue 80 | September to December 2019

CRY Great Cake Bake 2019 to midday and this year over 300 people were served a cup of coffee, on top of the refills that were also provided.

Jamie’s family would like to thank the coffee making team (Judith Bishop, Karen Cowing and Linda Mitchleson to name but three), without whom there would have been a very long queue!

• Francesca Murgatroyd raised £405 from her cake

bake at Etwall Village Hall in memory of James Murgatroyd.

• The CRY Office raised £138.95 from their cake bake

(below).

“This is always a well-attended event and it gives the community an annual excuse for a catch up over coffee with friends and family, whilst enjoying some really wonderful home-baked cakes. The event is run to raise awareness of Cardiac Risk in the Young and there were many posters and leaflets around highlighting how past donations have been spent.

“On the day over £1,750 of cash was donated between the coffee and cake stalls and raffle table. Other donations received before and after the event raised the total to almost £2,100. All money raised goes to Jamie’s memorial fund at Cardiac Risk in the Young and is being used by the family to offer free heart screenings for local young people aged 14-35. The coffee morning will be held again in 2020 and is likely to be on the last Friday in November.”

• Jenny Lumley and those at Tees Valley Combined

Authority raised £197 from their cake bake, in memory of Jenny’s son, Alan Lumley.

• Ellery McGowan

raised £490.20 from her cake bake at Charterhouse School, in memory of her son, James McGowan (right).

• Sally Openshaw raised £2,037 from her cake bake at

The Jelly Roll Café.

• Theresa

Owen raised £454.17 from her cake bake at her workplace (right).

• Nadia Pomfret raised £1,500 from her cake bake in

memory of her son, Alessandro Pomfret (below).

• Sally Moodey raised £1,270 from her cake bake in

October in memory of her son, Samuel Moodey.

• Rose Murgatroyd raised £430 from her cake bake in

memory of her son, James Murgatroyd (right/below).

• Rita Ponting raised £951.30 from her cake bake in

memory of her son, Richard Ponting.

• Teresa Power raised £155 from her cake bake in

memory of Emily Giles.

www.c-r-y.org.uk

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CRY Great Cake Bake 2019 • Melanie Reilly raised

£286.15 from her cake bake in memory of Shawnton De Four.

• Kate Relph raised

£220 from her cake bake in memory of her sister, Joanne White.

• Shelagh Robinson

raised £758 from her cake bake in memory of her daughter, Amber Robinson (right).

• Suzanne Rowan raised £754 from her cake bake at

Arup in memory of her husband, Robert Rowan:

“On Thursday 21st November we held our first CRY Great Cake Bake at our Arup office in Fitzrovia, London. Several of my colleagues donated sweet treats including banana bread, rocky road, zucchini bread and pear loaf, to name a few. We also received cake and cupcakes from Humming Bird Bakery which went down a treat amongst the teams.

And thanks to Arup and the Humming Bird Bakery for supporting a cause very close to our hearts.”

• Tonia Say raised £300 from her cake bake in memory

of her son, Kyle Say.

• Sarah Shaw raised

£590 from her cake bake (right):

“It was my fifth great cake bake and we had great morning drinking coffee, eating cake and raising funds for CRY. What a lovely way to catch up with friends and help a very worthy cause. We raised the fantastic sum of £590 which included the sale of Christmas cards.”

• Lesley

Sheridan raised £352 from her cake bake in memory of her son, Paul Sheridan (right).

• Christine Slater raised £180 from her cake bake in

memory of Tim Jones.

• Emma Smith raised £633.03 from her cake bake at

“Helen Lavery designed and baked ‘Rabbie Bear’ and it got a lot of attention and many requests for photos, which helped raise awareness for CRY as we asked everyone to tag the charity in our photos.

A fellow fundraiser for Million Makers (Arup’s own charity) gave us their contactless payment device which meant we got even more donations, with nearly 50% being by card.

“We were very sad to cut up Rabbie Bear but he tasted as good as he looked and we raised some more money the next day, taking our final total to £700. A huge thanks to all my friends for donating their baked goods and time.

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Panelco Ltd in memory of Benjamin Michael Smith.

• Lisa Steel raised £164.50 from her cake bake in

memory of her brother, David White:

“Churchill Community College held their third cake bake sale in memory of David White. Parents, teachers and pupils donated/ baked cakes and raised a fantastic £164.50.”

• Luisa Stuart

and staff and students at St Francis Xavier’s Sixth Form College raised £149.74 from their cake bake (right):

Issue 80 | September to December 2019

CRY Great Cake Bake 2019 “Students in Glastonbury House at St Francis Xavier’s Sixth Form College worked together to put on a bake sale for staff and students. Together they raised £149.74.”

• Magda Tageldin raised £941.75 from her cake bake in

memory of her friend, Anthony Fitzgerald:

“We held a Christmas themed fair in New Eltham, South East London, in memory of our friend, Anthony Fitzgerald. We sold CRY Christmas cards, gifts, tea, coffee, hot chocolate, cakes and mince pies. We had a sweet cart and doughnut wall, craft table, tombola and raffle. Overall we raised a total of £941.75 for CRY. We had music on and I think everyone really enjoyed the day. Many thanks to all of our volunteers: Callum Robins, Isobel Cole, Jackie Hollands, Aida Tageldin, Samir Tageldin, Lydia Sabin, Nick Woodhead, Emily Starkey, James Hathaway, Kirsty Gregory, Hannah Morgan, Cherie Rogers, Demi Kemp, George Terry, Phoebe Greene, Hollie Jack, Amy Mitchell, Hannah Johnston and Paige Baldwin. Thank you to everyone who donated and supported us on the day. Thank you to the CRY team who provided great fundraising packs, with special thanks to Chloe at CRY.” • Amanda and Adrian Topp raised £5,020.08 from their

cake bake in memory of their niece, Bethany Mycroft (below).

• Natalie Varney raised £308 from her cake bake at AIM

Altitude.

• Hilary and Mattie

Wagstaff raised £760 from their cake bake in memory of Ethan Jones (right):

• Laura Wagstaff

and her colleagues at PolicyBee LLP raised £58 from their cake bake in memory of Ben Ramsay.

• Gillian Walker raised £270.35 from her cake bake at

her running club.

• Sharon Ward, Lucy and her colleagues at PDR

Construction raised £291.90 in memory of Jamie Loncaster:

“PDR Construction were pleased to host a cake bake and raffle on Thursday 21st November and raised £286.90 for Cardiac Risk in the Young, in particular the Jamie Loncaster Memorial Fund.”

• Ann Watson, Lucy and staff, students and parents at

Ascot Academy of Dance raised £121.19 from their cake bake:

“Some of our youngest dancers are shown here at the start of our CRY cake bake. We sold cakes and some Christmas cards between ballet classes. We would like to say a massive thank you to all the students and their families for baking such lovely cakes for everyone to buy, and for contributing so generously on the day. We raised £129.09 for CRY. We’re so pleased to support this amazing charity. Thank you to Ascot Academy of Dance for hosting this event.” Ann Watson.

• Louise Whitfield raised £115 from her cake bake in

memory of Jack Atkinson.

www.c-r-y.org.uk

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Our Fundraisers Someone Special CRY received the following online donations from Virgin Money Giving Someone Special pages in 2019: • Eleanor Battel’s fundraising page in memory of Robert

Heyes raised £489.

• Faith Bates’ fundraising page in memory of Steve

Lesbirel raised £215.

• Brentford FC’s fundraising page in memory of Robert

Rowan raised £2,115.90.

• Trish Brown’s fundraising page in memory of Andrew

Oliver raised £1,780.

• Sue Coombs’ fundraising page in memory of Martin

Wailes raised £783.21.

• Alison Cox’s fundraising page in memory of Freya Cox

raised £2,850.

• Dawn Cubin’s fundraising page in memory of Hannah

Cubin raised £968.63.

• Richard Dixon’s fundraising page in memory of

Alexandra Dixon raised £1,208.76.

• Susan Fisher’s fundraising page in memory of Phil

Standing raised £993.06.

• Laura Fitzgerald’s fundraising page in memory of

Anthony Fitzgerald raised £1,097.

• Carolyn Hersey’s fundraising page in memory of

Leighane Hersey raised £152.

• Vikki Hogg’s fundraising page in memory of Ben

Forsyth raised £100.

• Rouge Jahangir’s fundraising page in memory of

Ariana Jahangir raised £3,370.

• David Johnson’s fundraising page in memory of John

Clune raised £639.38.

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• Tiahna Joshi’s fundraising page in memory of Alex

Philippou raised £490.

• Martin Kerwood’s fundraising page in memory of

Jennifer Kerwood and Betty Clayton raised £322.62.

• Anthony King’s fundraising page in memory of Zoe

King raised £5,003.85.

• Elizabeth Leonard’s fundraising page in memory of

Mark Sebba raised £523.68.

• Charlotte Leyland’s fundraising page in memory of

Joseph Leyland raised £310.

• Kate Milburn’s fundraising page in memory of

Stephen Owen raised £389.94.

• David Newman’s fundraising page in memory of

Rachel Gabbitas raised £2,315.03.

• Siobhan Pirie’s fundraising page in memory of John

Pirie raised £5,794.

• Olivia Saro-Wiwa’s fundraising page in memory of

Suanu Saro-Wiwa raised £508.67.

• Morag Sheridan’s fundraising page in memory of Paul

Sheridan raised £3,133.

• Sara Sheridan’s fundraising page in memory of Paul

Sheridan raised £1,334.

• Tom Smart’s fundraising page in memory of Alex

Hubbard raised £850.

• Sue Spurling’s fundraising page in memory of Rupert

Spurling raised £1,831.86.

• Leo and Della Tudisca’s fundraising page in memory

of Isabelle Tudisca raised £610.

• Marie Watson’s fundraising page in memory of

George Watson raised £280.

• Natasha Williams’ fundraising page in memory of

Leonard Fagan raised £185.

• SearchFlow Ltd’s fundraising page in memory of

James Pilfold raised £1,735.

Issue 80 | September to December 2019

Our Fundraisers Regular Donors CRY received regular donations in memory of young people from the following supporters in 2019:

In Memory of

Graham Button

Alison Button donated in memory of Graham.

In Memory of

Jenny Conway

In Memory of

David Aitchison

Dave Kenyon donated in memory of Jenny.

Jenny Aitchison donated in memory of David.

In Memory of

Claire Beer

Margaret Howroyd donated in memory of Claire.

In Memory of

Andrew Dale

Joyce Dale donated in memory of Andrew.

In Memory of

Ryan Darby

In Memory of

John Darby donated in memory of Ryan.

Ewan Bellamy

Judie Street donated in memory of Ewan.

In Memory of

James Devlin

L Power donated in memory of James.

In Memory of

Alexander and Derek Brinck-Johnsen

J Brinck-Johnsen donated in memory of Alexander and Derek.

In Memory of

Nathan Butler

K Hemmings donated in memory of Nathan.

www.c-r-y.org.uk

In Memory of

Matthew Dewhirst

Catherine Gray Upton and Mark McBrien donated in memory of Matthew.

In Memory of

Peter Dubery

Rob Dubery donated in memory of Peter.

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Our Fundraisers In Memory of

Nigel Edgar and Kenneth Byrne

Amanda Barker and Karen Byrne donated in memory of Kenneth and Nigel.

In Memory of

Sebastian English

A Estridge and Mark Davies donated in memory of Sebastian.

In Memory of

Harry Faulkner

Barry Gilbey donated in memory of Harry.

In Memory of

Anthony Fitzgerald

Rachel Kelly and S J M Murphy donated in memory of Anthony.

In Memory of

Matthew Hadfield

Dan Watts-Read donated in memory of Matthew.

In Memory of

Matt Hales

Richard Hales donated in memory of Matt.

In Memory of

Graham Harrison

Jade Edgington donated in memory of Graham.

In Memory of

Liam Hipkin

Julie Rust donated in memory of Liam.

In Memory of

In Memory of

Jon Fletcher

W Fletcher donated in memory of Jon.

In Memory of

Andrew Gard

William Barnett donated in memory of Andrew.

John Hodgetts

P Tayler-Jones donated in memory of John.

In Memory of

Lauren Holly

L McBrearty donated in memory of Lauren.

In Memory of

Stewart Howard

In Memory of

Jeremy Green

Julie Williams donated in memory of Stewart.

Carole Green donated in memory of Jeremy.

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Issue 80 | September to December 2019

Our Fundraisers In Memory of

David Howorth

Kathryn Howorth donated in memory of David.

In Memory of

Daniel Hughes

Mark Bartlam donated in memory of Daniel.

In Memory of

Jamie Loncaster

Jenny Loncaster donated in memory of Jamie.

In Memory of

John Marshall

R Bagguley donated in memory of John.

In Memory of

Neil Hustwit

CA Hustwit donated in memory of Neil.

In Memory of

Josh Merrick

Carmel Merrick and S Merrick donated in memory of Josh.

In Memory of

Charlie Ibrahimi

Fatima Ibrahimi donated in memory of Charlie.

In Memory of

Richard Merriman

In Memory of

Lisa Johnson

Steve Walters donated in memory of Richard.

Roy Lovatt donated in memory of Lisa.

In Memory of

Adam Middleton

In Memory of

Judith Krish

Donna Mayall donated in memory of Adam.

JP Krish donated in memory of Judith.

In Memory of

Pardeep Nagra

In Memory of

R Nagra donated in memory of Pardeep.

Natalie Lawrence

David Lawrence donated in memory of Natalie.

www.c-r-y.org.uk

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Our Fundraisers In Memory of

Andrew Patterson

N Brackenridge donated in memory of Andrew.

In Memory of

James Patterson

C Patterson donated in memory of James.

In Memory of

Ben Simpson

Rob Simpson donated in memory Ben.

In Memory of

Paul Simpson

Jeanette Simpson donated in memory of Paul.

In Memory of

Jack Phillips

Patrick Mullens donated in memory of Jack.

In Memory of

Joanne Sindrey

Geoff Sindrey donated in memory of Joanne.

In Memory of

Tanja Price

M E Bonstow donated in memory of Tanja.

In Memory of

Kieran Sparrow

Phil Sparrow donated in memory of Kieran.

In Memory of

Alex Reid

Dr Rejia Ullah donated in memory of Alex.

In Memory of

Rupert Spurling

Daphne Spurling donated in memory of Rupert.

In Memory of

Alex Roberts

V MacLeod donated in memory of Alex.

In Memory of

Natalie Stewart

G and C Stewart donated in memory of Natalie.

In Memory of

Tom Russell

Toby Butterworth donated in memory of Tom.

36

Issue 80 | September to December 2019

Our Fundraisers In Memory of

David Styles

M Styles donated in memory of David.

CRY also received regular donations from the following supporters in 2019: A Charlwood • A Fallon • Adam Guest • Alina Gregory • Andrew Brooks • Andrew Watson • Angela Meyers • Anna

In Memory of

Claire Taylor

Glenis Taylor donated in memory of Claire.

Brewer Wormleighton • Arielle Stealey • AS Miller • B & CA Weeks • Ben Herson • Beverlyn Katigbak • C Booth

In Memory of

Hannah Turberville

Christopher Turberville donated in memory of Hannah.

• Charmy Mackeen • David Ennett • David Nuttall • DJ Allen • Doreen Roberts • Dr D Parham • Edward Magee • F Gomez • Gary Proctor • H Mestchian • Harry Eaton

In Memory of

Katherine Wilcock

Maureen Richardson donated in memory of Katherine.

• J Uscroft Mould • J Vaughey • James Perry • Jean C Massey • John Aitken • Jonathan and Zenia Duell • Josephine Pwajok • K McNamara • K Wilson • L Anderson • Leslie Baker • Matthew Steeples • Michelle Foley • Mr

In Memory of

Matthew Wilkin

Hayley Pizzey and R Wilkin donated in memory of Matthew.

C Barnes • Mrs A Bath • Mulika Harnett • N Holman • Nicola Turnbull • Oliver Joy • Peter A James • PN Jarvis • R Wheeler • Rachel Davies • S & J Clark • SA Rintoul

In Memory of

• Sandra Wheeler • Susanne Keen • Tom Pavitt • Trina

June Jacob donated in memory of Charlotte.

Ingledew • Victoria Mizen • W Perring • William Torr •

Charlotte Winters

www.c-r-y.org.uk

37

Our Fundraisers Entries appear in the following section according to when CRY sends written receipt for funds raised. The following fundraising was receipted from September to December 2019.

Corrections Unfortunately, due to the size of the Update, with so many fundraisers to acknowledge and there being some overlap with memorial fund names, there can occasionally be mistakes. We always strive to enforce new methods to

In Memory of

Charlotte Adams

Mark Purkiss completed a skydive and raised £630.

eradicate such administrative errors, but we apologise if you have ever been affected in some way by this.

If you see a mistake in the Update or you have any questions, please do not hesitate to contact me at tom@c-r-y.org.uk.

In Memory of

Tom Arthur

• Carolyn Arthur sent in £550 representing donations

received in lieu of floral tributes, in memory of her husband.

• The Spotlight Theatre Amateur Drama Group donated

In Memory of

£100.

Paolo Albini

Angela Green at Allianz Risk Transfer (UK) sent in £175 raised from a memorial service attended by Paolo’s friends and colleagues.

In Memory of

In Memory of

Richard Atkinson

St. James Church Ashley sent in donations totalling £385 raised from the retiring collection at the memorial service of Richard Atkinson.

Earl Alburo

Team “Twinners for Earl”; Ayshe Hussein and Dilini De Silva Elia, took part in the CRY Heart of London Bridges Walk 2019 and raised £170.

In Memory of

Robert Allan

Chris Goldhawk and Team All The Gear and IPA Beer took part in the London to Brighton Cycle and raised £2,632.48.

In Memory of

Tiffany Andrews

Alison Lawrence organised a motor bike ride with the South Coast Bikers and Tiffany’s grandmother and raised £550.

38

In Memory of

Alan Bain

• Lynette Shearer sent in £325 raised from a raffle at the 50th reunion held in The Royal British Legion in Kirkwall.

• 4th Kirkwall Brownies took part in a sponsored silence and raised £110.

In Memory of

Andrew Baker

Andrew Hall sent in £410 raised through an annual golf day.

Issue 80 | September to December 2019

Our Fundraisers In Memory of

In Memory of

Christine Bloomfield sent in £115 raised through the Bob Baldwin Memorial Cup and from a raffle held at the Whell of Fortune P.H.

Kimberley Beecher sent in £1,676.01, including: £1,226.01 from a charity ball; and £450 from a raffle.

Bob Baldwin

Philomena and Simon Beecher

In Memory of

In Memory of

Andy Banks

• Aimee Olsson completed the Yorkshire Three Peaks

Challenge and raised £540.

Graeme (Tinka) Bell

Gemma Cannell sent in a donation of £747.50 raised by the 150 club at West Denton Fire Station.

• Joanne Swanson completed the Leeds Half Marathon

and raised £300.

In Memory of

Christopher David Bennett

In Memory of

Cecilia Barriga

Dave Hodgson sent in £100 in relation to signed bookmarks from Mike Fleet.

Mr and Mrs Bennett sent in £450, representing donations received in lieu of floral tributes in memory of their son.

In Memory of

Thomas Bennett

In Memory of

Lewis Barry

John Wyer donated £250.

Mark Barry took part in Spadger’s Memorial Ride in 2014 and raised £385.

In Memory of

Philip Bergman

In Memory of

Jason Bayram

Brian Bayram, Lauren Bayram, Tina Bayram, Ayden Wiltshire and Jason Wiltshire took part in the CRY Heart of London Bridges Walk 2019 and raised £343.48.

In Memory of

Matthew Beadle

• Lynne and Tony sent in £1,314.54 raised from refreshments at the National Garden Scheme at Eureka.

• Tracey Edwards sent in £125 raised at Red

Ox Fitness & Events.

www.c-r-y.org.uk

Jenny Bergman sent in £540 raised from the Philly B Cup.

In Memory of

Toby Berlevy

Francesca Unsworth organised a memorial fundraiser and raised £180.

In Memory of

Max Biles

North Dorset Rugby Football Club held a Summer 7s Rugby Tournament and raised £1,000.

39

Our Fundraisers In Memory of

Edward Billig

Alex and Louisa Billig took part in the Three Peaks Challenge and raised £835.

In Memory of

Steven Blair

Susan and Hunter Blair sent in £200 raised from collection pots.

In Memory of

In Memory of

Jack Boulton

• The employees of Ian Williams took part in a dress down Friday and raised £304.42.

• David and June sent in £311.50:

“The annual Jack Boulton golf team event was not held this year (October 2019) as the condition of the course was wet and there was more rain forecast. The club members were very generous and although the competition was not held an amount of £311.50 was raised for CRY. We hope that it will be possible to hold the fun competition in 2020, as it allows all sections of Saltford Golf Club to come together.”

Darren Blanchard

Daphney Morrow sent in £100.

In Memory of

Mathew Blease

Steve and Karen forwarded donations totalling £1,539.48 from Welwyn Garden City Ladies FC and Bengeo Tigers FC.

In Memory of

Simon and Peter Boakes

Abby Boakes, Chanel Boakes, Callum Boakes, Moira Boakes, Simon Edmonds, James Holland, Francesca Holland, Peter Holland and Brett Parish took part in the CRY Heart of London Bridges Walk 2019 and raised £200.

In Memory of

Matthew Bond

Kim Field sent in £2,405 raised at the Matt Bond Memorial Trophy cricket event.

In Memory of

Stephen Booth

Julie Ann Cartlidge sent £232.28 representing donations received in lieu of floral tributes, in memory of her partner.

40

In Memory of

Andrew Stratford Bowman

Matthew, Katie, Alix, Nigel and Maggie took part in the Texas Half Marathon and raised £1,554.31.

In Memory of

Harley Brandon

Michelle Bourne, Douglas Bourne, Stanley Van Geleen and Stacey Ladley took part in the CRY Heart of London Bridges Walk 2019 and raised £875: “What a wonderful way to raise money for CRY, seeing all the sights of London! I will definitely be doing the next one!!” Stacey.

In Memory of

Richard Brember

• Gordon Brember sent in £871.35 raised from a charity rugby match.

• Gordon Brember sent in £325 raised from the sale of tickets for the Portsmouth Uni/ Havant RFC - Town v Gown event.

Issue 80 | September to December 2019

Our Fundraisers • Colin Powell sent in £100 in sponsorship of Hayley

and Vicky’s abseil down the Spinaker Tower.

• Gordon Brember sent in £237.15 raised at the recent

screening held a Bracknell RFC.

In Memory of

Emma Broad

Jamie Couling took part in the Prudential RideLondon-Surrey 100 and raised £1,435.

In Memory of

Diane Brocklehurst

John Brocklehurst sent in £1,200.

“Money was raised at our annual Leanne Brownhill Summer Ball 2019 – Year of the Bands. A fantastic night was had by all who attended and this year we had two fantastic local bands (who played for free), rather than our usual disco. £230 was raised from the great raffle prizes donated by friends and family.

“Bar staff all sported CRY t-shirts and we had a CRY banner above the stage and collection receptacles on the bar and CRY awareness leaflets and posters scattered everywhere.

“I am always so amazed and humbled every year at the generosity of our community and the way our daughter is always honoured and remembered.”

In Memory of

Nina Buck

Eleri and Jane organised a charity ball and raised a total of £3,263.74.

In Memory of

Greg Brookes

Judy and Dennis Brookes sent in £500 raised from a lottery game organised by Steve James at The Plough in Ratby.

In Memory of

Alex Buckler

Charlotte Thornton climbed Mount Kilimanjaro and raised £5,394.63.

In Memory of

Steffani Broughton

Ian Broughton organised a fundraising evening attended by friends, colleagues, neighbours and family and raised £4,206.33.

In Memory of

Stuart Brown

Jason Brown took part in the Surrey Half Marathon and raised £3,390.04.

In Memory of

Leanne Brownhill

Lynne Brownhill sent in £1,234.01 raised at the 2019 Summer Ball:

www.c-r-y.org.uk

In Memory of

Rachel Buckley

Emma Oxenham and team completed The Tour of Tameside and raised £4,050: “In May 2017, our wonderful friend, Rachel Buckley, passed away suddenly but peacefully in her sleep aged 27. After her passing, her family received help, guidance and support from CRY, who do such incredibly valuable work for those reeling with such sudden and devastating loss.

“We – Emma Oxenham, Ian Blackwood-Hobbs, Cat and Sam Turton, Katie Pickering, and Freddie Watson – wanted to do something to raise money in memory of Rachel and for such a worthwhile charity. What could we do? We debated a few half marathons, some other daunting looking challenges, but then came across The Tour of Tameside and signed up with gusto!

“The Tour of Tameside is an annual four day running event

41

Our Fundraisers In Memory of

Jenny Bucknell

Hillary and Bill sent in £920, including: £520 raised from the Oak Fair, and £400 raised through a variety of enterprises and events.

In Memory of

Craig Burling

• Michelle Burling sent in £1,455.

(14-17th June 2019) held at various locations across Tameside, taking in beautiful scenery as well as slow, steady and steep hills! The event consisted of a mixed terrain 10k, a six miler called Hell on the Fell (!), a half marathon and a 7 mile road run.

“Tameside is local to where Rachel, and most of us, grew up so it was lovely to see Rachel’s parents cheering us on during the first event (thanks for the much needed encouragement!) Rachel’s sister Emily and her boyfriend Pete, as well as Rachel’s best friend Adele and husband Chris, all joined us for the first event too which made the start of the Tour a really special moment. They all absolutely smashed it – Rachel would have been so proud! Adele even went on to sign up for the half marathon (her first!) and again, finished in an amazing time. Adele’s dog Buckley, named after Rachel, was waiting for her at the finish line!

“Overall, we raised £4,050 for CRY and we would like to say such a massive thank you to everyone who donated what they could, as well as sending amazing messages of support along the way. It is evident from the support we received that Rachel made such a positive impact to so many people and she is missed by all – what an honour it is for us all to have been friends with such a beautiful person.” Emma Oxenham.

• Allison Laheney, Debbie Mullarkey and John Thomas took part in a 12 hour spectacular in Wales and raised £1,000.

In Memory of

Jordan Burndred

• David William sent in £331 raised from the Biddulph by the sea tombola.

• Nicola Burndred donated £100.

In Memory of

Digby Butler

Jonathan and Simon completed the Devizes to Westminster Canoe Race and raised £2,044.11.

In Memory of

Nathan Butler

• Steve Smith sent in £300 received in

lieu of birthday gifts.

• Angela Butler sent in £9,976 raised at their annual cricket tournament:

“£9,976 is the fantastic amount raised at our annual Nathan Butler Memorial Cricket Tournament on Sunday 25th August, 2019. The tournament was held at Porthill Park Cricket Club, which was Nathan’s second home where he spent many happy hours.

“After last year’s monsoon, we knew that the weather couldn’t be any worse this year but what a complete contrast – the sun shone all day and the temperatures

42

Issue 80 | September to December 2019

Our Fundraisers

soared to 85 degrees! The usual 6 teams competing were Trigger’s All Stars (Nathan’s nickname was Trigger), Porthill Park, Longton, Wolstanton United, Cheadle, and Audley, and a lot of those playing for all of the teams were Nathan’s family and friends.

“The cricket was the highlight of the day and the tournament ended with a close final between Porthill Park and Trigger’s All Stars, who were champions for the last 3 years, but this year it was Porthill Park who lifted the ‘Trigger Trophy’.

“Were we prepared?

Kind of. A few swims in Hyde Park Serpentine and one ear infection later, Carter, Ben and I felt ready to tackle the Thames. The same can’t be said for the rest of the triathletes as Jay’s wetsuit was delivered a few days prior and his bike borrowed a few hours before.

“The event took place the weekend after the heatwave but the weather was far from it. The rain poured for the majority of the morning and we had to battle poor visibility in the 1.5km swim, head winds in the 40km cycle and puddles in the 10km run. We all survived to tell the tale and were motivated by the generous donations we had received for the CRY Nathan Butler Memorial Fund. Like the four of us, my cousin Nathan was a keen sportsman representing Staffordshire County Cricket at Under 14’s, Under 15’s and Under 16’s. Sadly, Nathan died suddenly of hypertrophic cardiomyopathy on the 22nd February 2006 at 16 years old. We also participated in memory of Adam Green and Alex Hubbard, who both passed away as a result of undiagnosed heart conditions at the ages of 18 and 21, respectively.

“The Nathan Butler Memorial Fund pays for regular heart screenings for young people in the West Midlands. We were pleased to have raised over £2,100 for the fund and look forward to the next challenge!” Edward Foulkes.

In Memory of

Zoe Butterell

“Nathan would be so proud to see that so many enjoyed such a fabulous day and donated generously to raise such a huge amount in his memory. Thank you to everyone, and special thanks to Samantha Jayne Photography for spending all day with us and capturing lovely memories.”

Angela Butler.

William and Stephen took part in the Chesterfield Half Marathon and raised £565.

• Eddie, Ben, Carter and Jay completed the 2019

London Triathlon and raised £1,802:

“In early January, six of my friends set themselves the challenge of participating in the 2019 London Triathlon Olympic Distance. As it became apparent that training was required, six soon became four and before we knew it we were waiting for the tube at 6:00 AM on Saturday 27th July, wondering where the time had gone.

www.c-r-y.org.uk

43

Our Fundraisers In Memory of

Yasmin Caldera

• Scottish Empire sent in £150 in respect of Jonny’s

participation in the Glasgow Half Marathon 2020.

• Elizabeth Williams sent in £100.

• Nicola Caldera sent in £135.50 raised from her recent screening event.

• Philippa Chandler, Kate Earwicker, Charlie Earwicker,

Zoe Earwicker, Sally Hawrych, James Hawrych and Kay Piper took part in the CRY Heart of London Bridges Walk 2019 and raised £183.41.

In Memory of

James William Campbell

James Day completed a Transporter Abseil in 2014 and raised £735.

In Memory of

In Memory of

Ally Calvert

Lauren Harrison took part in the London Marathon 2019 and raised £2,845.

In Memory of

Tony Campbell

Tullymore Swift’s FC held their annual memorial football tournament and raised £767.

Alex Camilleri

“Team Alex Camilleri 2019”; Susan Camilleri, Susan Couchman, Marion Dowling, Jo Gilks, Karen Sadler and Anne Watson, took part in the CRY Heart of London Bridges Walk 2019 and raised £1,056.

In Memory of

Arabella Campbell

• Frankie Harrington and the MMUC

Netball team took part in a Charity Netball Tournament and raised £125.

• Jo and Holly Barden organised a ‘Strawberry Tea Day’ and raised £569.

In Memory of

Euan Campbell

• Margaret Waddell took part in the

Glasgow Kilwalk and raised £3,701.56.

• Margaret Waddell sent in a total of £20,000.

• Arnold Clark Automobiles Ltd sent in £5,948.70.

44

In Memory of

Amelia Carney

Emma Carney sent in £1,010.40.

In Memory of

Matthew Carscadden

“Team Matt”; Sam Carscadden, Maisie Carscadden, Dean Cross, Stacey Dewan, William Hyndman, Daphne Hyndman, Sarah McKie and Kirsty-May McKie, took part in the CRY Heart of London Bridges Walk 2019 and raised £460.

In Memory of

John Chapelhow

Judith and Keith Chapelhow sent in £310 raised at John’s Nana and Grandad’s “60th” diamond wedding anniversary.

In Memory of

Anthony Child

Angie and Jack Child sent in £1,170 raised at a line dance

Issue 80 | September to December 2019

Our Fundraisers “A massive thank you and well done to Abbie Brett on being sober for October – it is an amazing achievement for our bar lady and such an incredible amount to raise £2,329.”

• Katie Bridges sent in

disco hosted and organised by Kim Ray.

In Memory of

Katrina Christopher and Cheryl Christopher-Webber

£2,090 raised through her Virgin Money Giving page and various fundraising, including:

“£411.67 from screening day donations from 26th October 2019 – thank you! “£100 from Barclays – Cut the cake team weight loss.

Thank you!

Freddy Christopher-Webber, Lorraine Heath, Jean Heath, James Webber, Vivienne Christopher, Daphne Merchant, David Merchant, Terry Plumb and Keith Perry took part in the CRY Heart of London Bridges Walk 2019 and raised £1,908.

In Memory of

Tom Clabburn and Claire Prosser

Nicola Smith sent in £298.05 raised from her 2014 Airfit Charity Class.

“£1,187.20 raised from The Big Whitegate Walk (above).

Thank you to Nige, Francesca and team for all your hard work.

In Memory of

“Thank you to the Kinderton Middlewich for hosting a charity bingo night and raising a fantastic amount of £1,800 (right).

Darren Clark

Timothy Hodges took part in RideLondonSurrey 100 and raised £769.

In Memory of

Michael Clarke

• Enterprise RAC Ltd donated £1,000.

• Abbie Brett completed her sober for October challenge and raised £1,463.50:

www.c-r-y.org.uk

“£24 from Enchanted Blooms.

Thank you for donating a flower pumpkin into a raffle! “£50 from Crewe Corinthians FC – thank you! “£145 from St Wilfrid’s Primary School raised from holding a ‘wear it red day’ – thank you!”

45

Our Fundraisers In Memory of

course, haha). It was such a great race with thousands of participants.

• Caroline Clune-Moore sent in £3,179.61, representing

“Here is a picture from the finish line – the little girl is my friend’s little girl called Clara (her and her sis, Elle, were there to meet me at the finish line!)

• Caroline Clune-Moore sent in £790.21.

“I took off around 8:05am and made it round the 14k course in 1hr 16mins (not too bad)!”

John Clune

donations received in lieu of floral tributes in memory of her husband.

• Harry Clune raised £2,442 from his Heavy Bags

Tribute Act skydive.

In Memory of

Jenny Conway

In Memory of

David Cochrane

Ray Newton took part in a sponsored walk and raised £1,436.

• Belinda Rock sent in £650 raised from Jenny’s dress down day at Staffordshire Police HQ. • Staffordshire Police HQ participated in a dress down day and raised £650.

In Memory of

Craig Colley

Nic Austin sent in £1,500 raised through football tournaments.

In Memory of

Adam Cooper

Joy Cooper-Crippen sent in £1,070 raised from her 60th birthday.

In Memory of

James Colman

• Chris Brown sent in £5,000 raised from

the Westend Beer and Cider Festival.

• Chris Brown sent in £635 raised through

the Nailsea United FC Beer Festival.

In Memory of

Adam Connolly

Shelly Connolly completed The Sun Herald City2Surf Run and raised £560: “Sunday’s run went ahead with a strong tail wind helping me up heart break hill (yep, that is actually a name for a part of the

46

In Memory of

Leyton Cooper

Joel Burton took part in the Great North Run 2019 and raised £456.

In Memory of

Graham Courtney

Richard, Joyce, Andrew and Catherine took part in their ‘Young at Heart’ fundraiser and raised £820.

In Memory of

Bruce Cousins

• Jackie Cousins sent in £180 collected

by Nathan Fereday to mark the 10th anniversary of Bruce’s passing.

• Jackie Cousins raised £139.20 from a market stall.

Issue 80 | September to December 2019

Our Fundraisers • Emma Smith took part in a walk and raised £110.

• Jackie Cousins

organised an Elvis night and raised £496:

“Here’s a photo of an artist who appeared at the recent packed memorial event where a massive £496 was donated through ticket sales, raffles, etc. Special thanks to Nathan, Joan and Jean; without their help such events would not take place. Also, thanks to the Monkwood pub in Rawmarsh who have been constant friends of our fund and CRY.”

In Memory of

Freya Cox

• Paul Turnham took part in the Prudential RideLondon-

In Memory of

Matthew Cragg

• William Thornton donated £108.50 in memory of his friend.

• Ewa Pitulia held an open house event and raised £463.

• Lucy Stephenson took part in a 10km mud race in

2014 and raised £280.

• CRY Patron Jack Clifford raised £150 from the sale of

rugby items.

In Memory of

Charlie Craig

• Mexichen Chinley took part in various

fundraising events and raised £470.55.

• The Meadwells completed Ride4Charlie South Downs Way and raised £670.

• Virginia Roberts donated £200 in lieu of her ride

through New Zealand.

Surrey 100 2019 and raised £535.

• Maria Burns took part in the Bath Half Marathon and

In Memory of

• Katherine Cook took part in the Cambridge Half

Melvyn Biddulph, Brian Bunning, Elijah Bunning, Holly Bunning, Reuben Bunning, Mary Crowhurst and David Crowhurst took part in the CRY Heart of London Bridges Walk 2019 and raised £620.

raised £270.

Marathon and raised £665.

• Mike Cox donated £225.

Jonathan Crowhurst

• Madeleine and John Morrison completed the

Frankfurt Half Marathon and raised £865.35.

• Lucy Kidner took part in the Asics Greater Manchester

Marathon and raised £623.

• Beth Lacey completed the Bristol 10k and raised

£581.91.

In Memory of

Peter Cox

Team “For Pete’s Sake!”; Stella Cherry, Tiffany Cherry, Esmee De’Ath, Kimberley De’Ath, Jackie Edmonds and Hayley Hodgeson, took part in the CRY Heart of London Bridges Walk 2019 and raised £1,010.

www.c-r-y.org.uk

In Memory of

Rob Crozier

Team “Crozier’s and Simon’s”; Angela Crozier, George Crozier, Nick Simon, Amelie Simon and William Simon, took part in the CRY Heart of London Bridges Walk 2019 and raised £190.

In Memory of

Simon Cullum

Team “The Daddy”; Judy Burton, Linda Cox, Marilyn Cullum and Sandra Skipper, took part in the CRY Heart of London Bridges Walk 2019 and raised £285.

47

Our Fundraisers In Memory of

Stuart Cutler

• Natalie Cutler sent in £555, received in lieu of gifts for her birthday.

• Natalie Cutler sent in £600 raised from holding a fundraising Halloween party.

In Memory of

Adam Dabell

John Dabell sent in £600 raised from a memorial football match: “On the evening of Thursday 10th October, East Grinstead Town Football Club were host, once again, to the 16th annual Adam Dabell Memorial Cup and Trophy football match between Imberhorne and Sackville 6th Forms – in celebration, once again, of the life of our son, Adam Dabell, and to raise voluntary contributions to the charity CRY.

throughout. Another hugely successful evening for both schools and indeed the local community as a whole, physical and skilful. Imberhorne are currently leading 9-7 in the overall head to heads. Watch this space!

“Danny Favor, our Town Mayor, had photos taken with both teams and presented the cup, trophy and medals.

“In front of a large crowd of mainly our Town’s wonderful young people, Sackville took the Cup and Trophy, beating their Imberhorne friends 3–0 (reversing last year’s winner result!).

“Once again the crowd looked forward to enjoying an evening of great sportsmanship and the two teams did not disappoint. They came out at the start of the evening looking evenly matched and, with the great skill we have come to expect, entertained us all with 90 minutes of terrific football.

“Ali Curry (Sackville School Sports Head) reports: “‘The first half of the game was even, with Sackville dominating the midfield but creating few chances. Ethan Carrick had a one-on-one with the keeper who saved it. Imberhorne played down the channel between the Sackville left and centre back when attacking and they had a one-on-one with the goalkeeper that was saved by Kamil Stalinski. “‘In the second half, Sackville dominated possession and territory and won a penalty which was scored by Ethan Carrick. As Imberhorne began to tire more mistakes were made and Sackville punished them. Ethan Carrick scored both goals in open play, giving him his hat trick.

They could have scored more except for the agility of the Imberhorne goalkeeper.’”

“A fantastic effort from both teams! Thanks also once again to the young fans who showed respectful support

48

“As is always the case, he had been most impressed with the standard of the football and by the fantastic spirit of the young people of the town, attending this now wellknown Community Event.

“Thank you, as always, to Richard Tramontin and EGTFC for their kind support of this annual memorial event in memory of Adam. And also Steve Hill, the West Sussex Sports Coordinator, who, with Simon Bunn, had the original idea for the match. I spoke briefly to declare the event another huge success and asked that everyone dig deep in support of CRY. “It is now 15 years since the death of Adam to an undiagnosed heart condition. Indeed, Steve himself was only the year before last diagnosed with just such a heart condition and, thankfully, is now fully recovered, following an operation to rectify.

“Voluntary contributions on the night of the match, plus donations from Adam’s family, raised £500 for CRY, for which we are very thankful.” John Dabell.

Issue 80 | September to December 2019

Our Fundraisers In Memory of

Freya Rose Dalrymple

• Ingrid Dalrymple sent in £1,055,

including: a further £405 raised from her Walk for Freya event; £250 on behalf of Donaldsons of Orkney; £200 donated by close family friend, Stewart Chalmers; £200 raised from holding a tabletop sale in Kirkwall.

In Memory of

Steven Deeney

Kevin Duffin took part in the Newtownards Half Marathon and raised £503.

In Memory of

Conor Delaney

• Ingrid and Dave Dalrymple sent in donations totalling

Christopher Delaney took part in the Gung-Ho 5k Challenge and raised £460.

£756.91 raised at a screening event.

• Susan Shearer, Catherine Hine and families held a

tabletop sale at the Boys Brigade Hall in Kirkwall and raised £709.30.

• Kerri Budge, Kirsty Macleod, Nikki Miller and Caitlin

Bryan took part in the Hoy Half Marathon and raised £1,450.

In Memory of

Ben Daniels

• Rachel Bentley took part in the Royal Parks Half Marathon and raised £640.99.

• Emma and team took part in the Why Not

Run 2015 event and raised £1,193.

In Memory of

Thomas Demaine

• Michaela Giles sent in £172.05.

• Olly, Lucy, Emily and Sam took part in the Plymouth Half Marathon and raised £1,735.

• Looe Rowing Club donated £1,000.

• Andy and Ann forwarded a donation of £900 from the

Cornwall Councillors.

• Ann Demaine sent in £500 from the Tamar Trotters.

• The Co-Operative Group Limited donated £5,237.05.

In Memory of

Andrew Dawson

Ann Bath organised a cake bake and raised £264.49.

• Andy and Ann sent in further donations totalling

£1,308.61.

• Andy, Ann and Team took part in Cycle4Tom from

Bristol to Land’s End and raised £4,328.20:

In Memory of

Shawnton De Four

• Matthew Hearsum sent in £310 raised by Old

Emanuel RFC and Roslyn Park FC.

• Ali Burr completed a cycle from London to Paris in 24

hours and raised £730.

In Memory of

Jake Dean

Ros MacGregor took part in Dry January and raised £725.

www.c-r-y.org.uk

“Pleased to say the cycle ride has been completed and was a great success. 12 like-minded people who knew Tom Demaine came together to ride from Bristol to Land’s End in his memory, raise awareness of deaths from hidden heart conditions in young people, and to raise the funds for free heart screening for young people in East Cornwall.

“Planning started six months ago after a chance meeting in Lidl and included practice cycle rides and awareness days at Coop, Certini Bicycles and the Dartmoor Classic Sportive.

“It was the hottest weekend of the year, so the cyclists did brilliantly to keep to the itinerary in good cheer despite big hills and searing heat. They started at B&M Imperial Park,

49

Our Fundraisers screening programme for young people.

Bristol where Tom had started as deputy manager just before his death. Manager Chris Robinson and his staff gave a warm send-off with a generous donation of food and a presentation of £250 collected by staff.

“Lanivet provided the most amazing facilities for chilling out and we all slept well on the mattresses kindly provided by Julie Ball from Cornwall Scouts. Michelle and Rich made and served an evening meal and cooked breakfast to the team who set off on a much cooler and flatter Sunday morning en route to Land’s End.

“Lunch was provided by a volunteer, Sally Lewis, from Chumleigh who had picked up a request for help from Facebook at the stop at West Monkton. The staff at the Buckerell Lodge Hotel looked after us brilliantly in our overnight stop in Exeter, giving space and ice to physio Rob Durant to provide free massages to the riders.

“Tom’s old manager, Chris Letheridge of B&M Redruth, and his staff provided lunch for the team before their final and by now hot and demanding last leg of the journey along the North Cornwall coast. He coupled this with a collection from the store and presentation by Tom’s old colleagues.

“On day two the weather was just as hot and the Salmon Leap cafe at Buckfastleigh gave our van and support team space by the stream in their car park to cook the bacon baps for elevenses, with bacon provided by Paul Bray Butchers of Tideford.

“The final leg gave us stunning scenery, a couple of stops to enjoy the views and take on water before their penultimate stop at St Just RFC to meet old friends.

Louise Snelson herself had delivered CPR to her husband to save his life a couple of years ago.

“Owner Lee ‘Jack’ Russel of Jack’s Gym, Saltash, hosted lunch where lots of friends and well-wishers joined in to cheer the team on at their halfway mark. Huge thanks to Theresa Prinn and Sandra Mitchell for the money from a raffle, as well as food provided along with many others!

“The sun was still shining when they crossed the finish line together, all team members having supported each other. A one minute silence was held to remember Tom, and Helen Ralph made a short but moving speech.

Each person also had their own personal challenge this weekend and we were pleased to be welcomed by a family who had lost their son and brother to SADS, as well as the cyclists’ families.

“The leg of the journey was particularly tough. Climbing up to St Neots whilst picking up the first and only puncture.

Duly mended, we did not need to use any of the bike spares kindly donated by Certini Bicycles.

“Running a bit late, the team were unable to meet with Scott Mann MP North Cornwall and went straight to the most amazing welcome at Lanivet Parish Community Centre, greeted by Michelle and Richard Gibbons. Many thanks to Scott Mann, who waited two hours for the cyclists but had a good chat with Ann Demaine and Jayne Smith, Aspirations Coordinator (and #CRY4TOM supporter) at Bodmin College.

Scott, along with Sheryll Murray MP East Cornwall, has signed the pledge in parliament to establish a national heart

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“A huge thank you to the cyclists: Helen Ralph, Ian Shirley, Ian Ross, Mike Lemin, Mike Ralph, Petra and Mark Williams, David Saunter, Martin Dixon, Ruth Hughes, David Landers and Jamie Curtis.

“Support staff: Paul Martin, Jon Mcleavy, Rob ‘Puds’ Durant and Ann Demaine.

“Kind Donations from: Tamar View Fruiterers, Saltash; Paul Bray and Son Butchers, Tideford; Ambrosia, Lifton; Co-op Saltash; VegBoxFresh, Saltash; B&M Saltash, Liskeard, Bristol and Redruth; Images, Saltash; Symbios; Michael and Diane Millward; and Certini Bicycles.”

Issue 80 | September to December 2019

Our Fundraisers In Memory of

Matthew Dewhirst

• Sue and Chris Dewhirst sent in donations totalling £7,402, raised as follows: £750 from Network with Style Extravaganza; £50 from Claire Jenkins; £570 from Sue France Sparkly Lunch; £714 from the Dyslexia Awards; £2,500 from artisan market sales; £100 from sales of CRY for Matthew Wmeyss Pig; £324 from November screening donations; £654 from the Shropshire Amateur Swimming Association; and £1,740 from Albright Hall Event participants.

• Enterprise Holdings donated £1,000 to the staff and

Alumni of Ellesmere following their run from Ellesmere College to Snowdon.

• Mrs Dodds sent in £606.87, representing donations

received in lieu of floral tributes in memory of her husband, Geoffrey Peter Dodds.

In Memory of

Adam Donnelly

Julie Donnelly forwarded donations totalling £184.44 raised from collection pots at Our Lady of the Rosary social club, The George Staples pub and the C1phertech Computer Shop.

In Memory of

Adam Drawbridge

In Memory of

Aaron Dixon

• Debbie Dixon sent in £4,909.38, including: £372.21 collected from Cyclocross Cudd Cross at Blakemere Village; £231.17 donated at the screening event held at Witton Albion FC; £306 raised at a quiz night at Davenham British Legion; £3,500 from the JD Foundation; and a further £500 donation.

• Lesley and Zoe took part in The Trawlerman and

raised £380.

• Olivia completed the National Three Peaks and raised

£823.73.

• Stephen Hambleton completed the Three Peaks 24

Hour Challenge and raised £1,000.

• Karen Field sent in £2,250 raised through fundraising

at Groundwork UK.

• The Grange School took part in various fundraising

events and raised £2,113.31.

• Zoe Goodden and Lily Slater made and sold dog

treats and raised £150.

• Kathleen Fleming sent in £150 in memory of her great nephew.

• “Team Adam”; Les Drawbridge, Sarah Drawbridge, James Drawbridge and Alicia Morphew, took part in the CRY Heart of London Bridges Walk 2019 and raised £560.

In Memory of

Bailey Drew

Emma Finlayson took part in the Great North Run 2019 and raised £440.

In Memory of

Annie Edwards

• Mike Bonsor took part in the Tour de Yorkshire and the Yorkshire Struggle cycling events and raised a further £100.

• Mike Bonsor raised £916.25 through taking part in ‘Healthy Hearts’ and ‘Chase the Sun - 205 mile Bike Ride’.

• Vauxhall Motor’s Football Club held a memorial match

and raised £540.

• The Red Lion in Northwich donated £500.

• Mrs Murphy donated £668.22 representing donations

received in lieu of floral tributes, in memory of her husband, Terence Murphy.

www.c-r-y.org.uk

In Memory of

Chris Edwards

David Mason and Cat Deeming took part in the Great North Run 2019 and raised a total of £669.90.

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Our Fundraisers In Memory of

Gary Edwards

• Hilary Edwards sent in £1,548.78,

including: donations totalling £574.70; and £974.08 raised through fundraising activities at the Secret Valley Christmas Tree Farm.

• Chloe Boobyer organised an 8-hour cupcake caper

and raised £292.

• Ben Thompson donated £100.

• Guy Steele-Bodger donated £100.

• Mr Rushton donated £100.

• Mark and Heather Hancock donated £100.

• Jillie Timmis donated £100.

• Roberta Greenhalgh donated £100.

• Anna Rees donated £100.

In Memory of

Rory Embling

• Anne Embling sent in £1,921,

including: £360 from screening donations; £322 raised at a movie quiz evening hosted by John Atha; £501 raised at the Ken Wright Marathon Football Challenge carried out in conjunction with Ackworth Junior Football Club; £232 raised from a Kylie Minogue tribute evening with Jennie Laine; and £506 raised at a Freddie Mercury and Queen night for Francesca, Rory’s sister’s, birthday.

• Jon Skelton completed a tandem skydive and raised

£933.86.

• Mr B Woolveridge donated £150.

In Memory of

Sebastian English

• Nigel and Jane Seddon donated £100.

• Lucy Barlow raised £190 from a singing event at Stapleford Granary.

• Scott Fenton completed the Paris Marathon and

raised £815.

• Alexander Myddelton donated £100.

• Andrew and Harriett Newland donated £100.

• Sir Nigel Sherlock donated £100.

• Bruce Mcintyre donated £500.

• Jonathan and Julia Brown and Richard and Sally

Heslop organised a Sebastian English Golf Day and raised £1,000.

• Wynne Owens donated £250.

• David Irwin donated £100.

• Richard and Sukie Ranken donated £100.

• Olivia Chapple donated £100.

• Andrew Hardy donated £100.

• George Luckraft donated £500.

• Clare Scanlan donated £100.

• Christopher St John donated £200.

• Francis Austen donated £100.

• Darrel Mercer donated £100.

• Chris Crosby sent in £988 from Haslemere Rugby

Club.

In Memory of

Sebastian and Howard English

• Michael Rudd donated

£100.

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In Memory of

Sebastian English and Mike Sorby

Ben Burrage and Hazelveare House completed the Hayling Island Run in 2018 and raised £187.

Issue 80 | September to December 2019

Our Fundraisers In Memory of

Morgan Evans

Angharad Evans sent in £135 raised from a Suie Quiz.

In Memory of

Anthony Fitzgerald

• Hannah Morgan and Sam Ashdown completed a skydive and raised £900.

• Colfeians Masonic Lodge held a BBQ and raised £1,337.

In Memory of

Olukayode Famoriyo

• Jack Tait took part in the Barcelona Marathon 2019

and raised £2,084.48.

• Sophie Okell donated £100.

In Memory of

Harry Faulkner

• Julian Craxton sent in £290 raised at the 8th Junior Squash Tournament at Radlett.

• Sally and Ben took part in the Tough Mudder Classic Yorkshire 2019 and raised £140.

• Hemel Hempstead Lions Charity Trust donated £325.

In Memory of

Conor Feeney

• Maria Feeney took part in the CRY

Heart of London Bridges Walk 2019 and raised £660.

• Kim Feeney donated £190 raised through JustGiving.

• Blackheath FC Junior Section donated £10,000.

• Blackheath FC Junior Section raised £803.

• Team Fitz took part in RideLondon-Surrey 100 and

raised £8,710.

• “Team Fitz”; Izzy Cole, Ben Jacobs, Stephanie Jacobs,

Marie Fitzgerald, Laura Fitzgerald, Alison Fitzgerald, Noel Fitzgerald, Kiley Ganderton, Steven Murphy, Kelly Murphy, Agnes Murphy, Ryan Murphy, Carmel Osborne, John Osborne, Krishan Patel-Watts, Nimisha Patel, Elaine Pineda, Magda Tageldin and Kevin Watts, took part in the CRY Heart of London Bridges Walk 2019 and raised £325.

In Memory of

Matthew Fleming

Richard Fleming took part in the CRY Heart of London Bridges Walk 2019 and raised £1,068.41.

In Memory of

Dean Fletcher

Andy Fraser at Bovis Homes South West Region took part in the Cardiff Half Marathon and raised £4,003.86.

“Tarryn Lowth, Ryan Joint, Ruth Burrows, John Drewett, Andy Fraser, Rosen Petrov, Joanne Farr and Kev Saunders all took part in the Cardiff Half Marathon.”

In Memory of

Josh Fell

• The Inner Wheel Club of Bridlington sent in £1,000.

• Louise Clappison sent in £674 raised by team Purple People taking part in a cycle and a further £55 raised through a Someone Special page, in memory of Phillip Steven Cross.

www.c-r-y.org.uk

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Our Fundraisers In Memory of

In Memory of

Ben Forsyth

Matt Gadsby

• Margaret Forsyth forwarded a donation of £100 from Julie and Alistair Bonthron and family.

• Murray Watson took part in cycling the West Highland Way and raised £1,365.

• The Edinburgh University Geographical Society hosted

various fundraising events such as an autumn celidh, a winter ball and a ‘donate and date’ night and raised £4,476.

David Davies sent in £100 from members of the Newton Regis Golf Society.

In Memory of

Lyndsey Galligan-McLaughlin

James Galligan sent in £100.

In Memory of

Stephen Gately

Lenie Keizer, Debbie Woolley and Sarah Rodriguez took part in the CRY Heart of London Bridges Walk 2019 and raised £124.

In Memory of

Clare Louise Gaunt

• Emma, Rosie, Nicola, Declan, Jamie and Rachel took

part in a Tough Mudder and raised £420.

• Brian and Joan Thom organised a collection and

raised £175.

• Murray’s Funeral Directors, on behalf of Clare’s

husband, sent in £528.81, representing donations received in lieu of floral tributes in memory of Clare.

• Beverley Broadhurst took part in the Peak District

Ultra Challenge and raised £914.70.

• Nicola Hancock and Ian McKenzie held a charity night

and raised £300.

In Memory of

Salena German

• Keith and Margaret sent in £835 raised from Ben’s

Birthday Bash.

Jackie German forwarded a donation of £203 raised from collection boxes in her brother’s shop.

• Dillon Plahe at Finnegan’s Wake sent in £100.

In Memory of

In Memory of

• David Newman raised £2,315.03 through his

• Lee Thompson completed an 85km swim and raised

• “Team Gabbitas”; Barry Baldwin, Kevin Gabbitas,

• Volac International sent in £2,000.

Rachel Gabbitas

JustGiving page.

Sarah Gabbitas, Sheila Gabbitas and James Lawson, took part in the CRY Heart of London Bridges Walk 2019 and raised £221.79.

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Josh Gilbert

£1,927.

• Bob and Trish Baker completed a bike ride from

Blackpool to Portman Road, Ipswich and raised £300.

Issue 80 | September to December 2019

Our Fundraisers • CRY Representative Melanie Webster collected

a donation of £600 from the Stowmarket Young Farmers raised at their annual ball.

In Memory of

Ashley Goodwin

Linda Goodwin held a car boot sale and raised £160.

In Memory of

Emily Giles

Team “The Little Mermaids”; Teresa Power and Sophie Power, took part in the CRY Heart of London Bridges Walk 2019 and raised £420.

In Memory of

Gary Giles

Jackie Cook sent in £250 raised through six-a-side cricket matches between the members of the Lamb Inn football team (Marlborough), Marlborough Town Football club and Minal Cricket Club, together with an annual Minal Duck Race.

In Memory of

Sam Glover

• Tom Glover took part in a Tough Mudder and raised

£200.

In Memory of

John William Goodwin

Mr D Goodwin sent in £187.65, representing donations received in lieu of floral tributes in memory of his father.

In Memory of

Matthew Gore

• Chimp Management donated £100.

• Team “Matt”; Stacy Bates and Fiona Gore, took part in the CRY Heart of London Bridges Walk 2019 and raised £200.

• Julie and Amanda took part in the Liverpool Rock ‘n’

Roll Half Marathon and raised £405.

In Memory of

Adam Green

• Tom Glover held a Facebook fundraiser and raised

• Tom Green and team took part in the Market Drayton 10k and raised £650.

£1,067.

• Elizabeth Mascarenhas sent in £100 in support of

Tom, in memory of his brother.

In Memory of

Finn Goff

Millie Goff forwarded £100 donated by her son’s church playgroup, Caldy Church Baby & Toddler Group, in memory of her husband.

• Tom and Judy Green sent in £893, including: £70 from Judy’s jams; £600 from Cheryl Cutler’s garden party; and £223 from MD10k.

• Tom and Judy Green sent in donations totalling £400

raised as follows: £100 from Cheryl Cutler’s garden party; and £300 from Ashley Young Farmers.

In Memory of

Tom Greenwood In Memory of

Jonny Goga

Team “Houlton”; Lauren Houlton, Liz Houlton and Troy Houlton, took part in the CRY Heart of London Bridges Walk 2019 and raised £310.

www.c-r-y.org.uk

Ruth Turner took part in the 3 Peaks for 3 Charities challenge and raised a total of £125.16.

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Our Fundraisers In Memory of

Oliver Griffin

• Joanne Matthews took part in the RideLondon-Surrey 100 and raised £605.

• Owen Griffin took part in the London

Marathon 2019 and raised £3,636.85.

In Memory of

• Andy Hunt took part in the Prudential RideLondon-

Surrey 100 and raised £1,730.

In Memory of

David Edward Haggerty

Pauline Haggerty sent in £236.15 representing donations received in lieu of floral tributes in memory of her husband.

Kayleigh Griffiths

• Team “Kayleigh”; Vanessa Caulkett, Hayley Caunt, Tracy Chambers, Ash Eames, Brian Eames, Rochelle Eames, Archie Griffiths, Ryan Griffiths, Leon Griffiths, Wendy Griffiths, Jody Hopkins, Clare Lapwood, Danielle Marven, Danielle Moore, Ashlei O’Brien, Grady O’Brien, Jane Pollard and Julie Thompson, took part in the CRY Heart of London Bridges Walk 2019 and raised £300.

• Wendy Griffiths held a charity darts competition at

Witham Town Football Club and raised £654.

• Maldon Golf Club donated £1,217.

In Memory of

David and Alan Guningham

Team “The Guningham Family”; Keith Burdon, Tori Burdon, Robin Clarke, Elizabeth Clarke, Edward Clarke, Hayley Hooper-Burdon, Joanne Guningham-Webster, Julie Guningham-Clarke, Richard Guningham, Heidi Gunigham and Emma Webster, took part in the CRY Heart of London Bridges Walk 2019 and raised £800.

In Memory of

Joseph Halliwell

Simon and Joanne Halliwell sent in donations totalling £130 raised at a recent screening event.

In Memory of

Shamil Hamid

New English School Kuwait donated £2,512.03 raised by the staff and pupils.

In Memory of

Ben Hammond

• Stephen and Sheralyn sent in a further

donation of £10,000.

• Chris Denyer took part in running for Lent: 40 miles in 40 days, and raised £425.

• Rebekah Goodhand took part in the Tenterden 10k

In Memory of

Matthew Hadfield

• Dan Watts-Read donated £100.

• Eraldo d’Atri, Marc Hadfield, Angie

Hadfield, John Hadfield, Amanda Hogan, Ben Hogan, James Hogan, Molly Hogan, Ollie Hogan, Diana Hunt, Andy Hunt, Peter Jones, Haidee Mcaughtrie, Michael Mcaughtrie, Peter Jones, Crona Sproson, Dan Watts-Read, Nick Hosman, Oliver Hunt, Holly Hunt, Arlo Hunt and Miles Hunt took part in the CRY Heart of London Bridges Walk 2019 and raised £2,023.

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Run and raised £180.

• Tim Baxter took part in the Tenterden 5k Run and

raised £602.50.

• Natalie Cartlidge sent in £131.90 raised by the

students at Highworth Grammar School through their sponsored walk.

• Terri Barry completed the Folkstone Half Marathon

and raised £405.

• Victoria Harris completed a 6-week fitness challenge

and raised £115.

Issue 80 | September to December 2019

Our Fundraisers In Memory of

Kyle Hancock

• Ian and Debbie Hancock held an awareness day and bucket collection in 2014 and raised £312.79.

• Ruth Willis forwarded £348 raised by the residents of West Lees Road, in lieu of sending Christmas cards.

In Memory of

Mark Hancock

Angela Hancock sent in £302, including: £82 raised by her mum, Anne Barber, through various craft stalls held throughout the year; and £220 donated by Biddulph Male Voice Choir, collected at a concert at Biddulph Town Hall.

In Memory of

Thomas Handling

Brendan Handling sent in £1,400 raised through a memorial bowling tournament.

had an event at The White Hart in Moreton with a singer, raffle, auction, and great food; we raised £11,185 for CRY. Everyone was so generous and it was a fantastic evening.”

• Alex, Billy and Georgia took part in a Tough Mudder

and raised £815:

“On Saturday 21st September, Georgia, Alex and Billy took on a Tough Mudder Challenge of 10 miles with 22 obstacles in memory of Georgia’s sister, Megan. Working as a team, the three of them stuck together, Billy and Alex pulled Georgia up the walls, and Georgia set the pace on the runs.

They pushed themselves to the limit, swimming through ice baths, crawling under barbed wire and dodging electric wires.

They completed the challenge in an amazing 2 hours and 10 minutes, raising £815 for CRY! Perfect training for Georgia’s London Marathon next year.” Katharine HardingJones.

In Memory of

Philippa Harbour

Ann and Steve sent in donations totalling £124.23, including; £24.23 from a collection box; and £100 in lieu of sending Christmas cards.

In Memory of

Megan Harding-Jones

• Katharine Harding-Jones sent in £13,817 from the Wix Young Farmers Club raised from their fundraising efforts throughout the year.

• Katharine Harding-Jones sent in £2,820 raised in

respect of the Thames Bridges Trek event:

“This year Megan would have been 21, so to remember her we decided to do The Thames Bridges Walk from Putney Bridge to Tower Bridge. It was a great day and such an easy walk seeing all the sights of London with our closest friends. To raise money for the challenge we

www.c-r-y.org.uk

“It was a brilliant day! Hard work but so much fun! Will be doing it again next year!” Alex Taffs.

In Memory of

Thomas Hardman

• Andrew Laws raised £342 via his JustGiving page.

• Charlotte Burrill and Team took part in TH96 Run 2019 and raised £900.

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Our Fundraisers • Siobhan Beirne took part in TH96 Run 2019 and

raised £190.

• Janine Brown took part in TH96 Run and raised £560.

• Adam Saville took part in TH96 Run 2019 and raised

£330.

• Richard and Margaret raised £1,367.50 from taking

part in TH96 Run 2019.

• Greg Warburton sent in £115 raised through

completing a 9 mile run.

• Jake Warwick took part in the Asics Greater

Manchester Marathon and raised £670.

• Sean Burrill took part in the Manchester Half

Marathon and raised £565.

• Chris Hardy took part in the TH96 Run 2019 and

raised £730.

• Heywood Cricket Club held a memorial cricket match

and raised £100.

• Margaret Hardman sent in £1,515 raised from a

cricket match:

“The seventh annual charity cricket match took place at Heywood CC in memory of Tommy Hardman and Trevor Jones. Tom started his career at the age of 8 at Heywood CC and went on to play for the Lancashire Academy, as well as the second eleven. Tom sadly passed away in his sleep on 28 November 2012, aged 21, whilst studying at Leeds University. Whilst at university, Tom played for the Leeds Bradford MCCU team and had just been selected to captain the team in the 2013 season.

“For many years Trevor ran a mid-week cricket team and many of the players said that he took a real interest in them and kept them on the right path, so it was an honour for them to take part every year. Trevor was a regular supporter of Heywood CC – he was a character and always had lots of banter with everyone who went past the spot where he sat.

“With the series at 3-3 and being inspired by the magnificent innings of hero Ben Stokes and the England win, Eggers XI and Tommy’s Lemons took to the field in glorious sunshine in front of a sizeable crowd on Monday 26 August 2019. Both teams consist of family and friends of Tom and Trevor.

“With 15 a side, everyone bowled 2 overs, with each displaying their own individual technique! Eggers XI went into bat with openers captain Daz Hill and Mikey Grogan,

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and they produced a patient first partnership, scoring slowly but staying in to frustrate The Lemons.

“Finishing on 164, The Lemons, under the captaincy of Scott Hardy, Tommy’s brother, had it all to do; but the controlled bowling of Eggers XI soon had them 19 for 4.

The fight back looked on, but unfortunately key wickets fell, leaving The Lemons’ short of the 164 target and Eggers XI now lead the series 4-3.

“Trophies were presented to the winning team/man of the match.

Sadly, Tommy Parkinson, wicket keeper for Eggers XI, passed away last year and his son, Liam, presented a trophy in his memory – Moment of the Match was awarded to Ryan Etchells for his unorthodox spinning!

“Another fantastic day with lots of talent, fun and laughter seen throughout, as well as raising lots of money for CRY. Watch out, England, Tommy’s Lemons and Eggers XI are available.” Margaret Hardman.

In Memory of

Jon Harley

Sophie Bates took part in the CRY Heart of London Bridges Walk 2019 and raised £600.

In Memory of

Gwyneth Rosemary Harries

Kathryn Harries sent in £180, representing donations received in lieu of floral tributes in memory of her mother.

Issue 80 | September to December 2019

Our Fundraisers In Memory of

Richard Harwood

Oliver Ruddock took part in the Mount Snowdon Box Jump and raised £3,541.

In Memory of

Ken Hau

Misti Selsby took part in a charity head shave in 2014 and raised a further £627.94.

In Memory of

definitely something I would do again if given the opportunity. Words cannot fully explain the amazing experience, and it was over before I even had time to be scared! By the time the parachute opened I was just getting used to free falling at 130mph, and then we began our descent with a safe landing. If you ever get the opportunity to take part in a skydive, I cannot recommend it enough. It will no doubt be one of the most amazing things you experience in your lifetime.”

Kathryn Hawley

Olivia and Ian Harness took part in the Normanby Hall 10k and raised £125.

In Memory of

Sarah Hayes

Castleton Methodist Church donated £500.

In Memory of

Pam Heritage

“Team Collins”; Sarah Collins, Sam Collins, Beau Collins and Belle Collins, took part in the CRY Heart of London Bridges Walk 2019 and raised £690.

In Memory of

Matthew Hesmondhalgh

In Memory of

Jonathan Hayman

Joe Jerome completed the Torbay Half Marathon and raised £225.

• Nathan’s Wastesavers sent in a further donation of £432.80.

• Clare Bugeja took part in the Great North Run 2019 and raised £600.35.

• Dawn Oliver sent in £200 in memory of her mother,

Brenda Manson.

In Memory of

India Hedley

Issy Coke completed a skydive and raised £387: “On 24 August 2019, I took part in a tandem skydive from 10,000ft.

My experience of skydiving was windy, intense and adrenaline pumping, but

www.c-r-y.org.uk

• Paula Hesmondhalgh sent in £5,662.59, raised as

follows: £1,415 from an Abba tribute event; £250 from Barnacre with Bonds Parish Council; £612 from Azcend Fitness; £255 from Garstang running club; £369.74 from Mats for Matt (Churchtown Beer & Cider Festival); Pam donated £359 raised in lieu of floral tributes in memory of her husband, Stephen (right); Ann donated £100 in memory of her mum, Elsie; The Ladies of Bolton Le Sands WI sent in £1,000 raised through their coffee mornings; the PCS North West and Central Lancs Branch donated £50; £300 from the PCC at St. Helen’s Church; and £951.85 from table top sales.

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Our Fundraisers In Memory of

James Hick

Melissa Williamson sent in £2,635 on behalf of Sulzer Pumps (UK) Ltd.

In Memory of

Christopher Hill

Melanie Hill took part in the Prudential RideLondon-Surrey 100 and raised £135.

In Memory of

Joe Hindmarch

etc. We also held a big raffle which had over 50 top prizes and our local news presenter came to announce the winners.

We had over 1,000 people turn up to the event and raised £7,000 for Lewin’s memorial fund with CRY.”

Nicola Hindmarch took part in Tough Mudder Yorkshire and raised £110.

In Memory of

In Memory of

Joshua Hardy took part in the Asics Greater Manchester Marathon and raised £1,826.99.

Charlie Holden

Laura Hillier

Tony and Joan Hillier sent in £812.50 raised at the Bilsworth Canal Festival.

In Memory of

Lewin Hodgins

• Khyle Hodgins took part in the Lisbon Marathon and raised £2,075.90.

• Kirsty Raper organised a family fun day and cricket match and raised £10,467:

“We held a family fun day on what would have been Lewin’s 1st birthday party. Over 130 businesses got involved donating their time, vouchers or raffle prizes.

We didn’t really know what to expect on the day but we held the day at my work (Lewin’s mum) which is a beautiful hotel with lovely grounds. We had bouncy castles, soft play, live singers and dancers, face painting, glitter, children’s tattoos, children’s princess nails, magicians, children’s entertainers, bake sale, 3 huge tombolas, princesses, sand art, games, a fire engine, donkeys,

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In Memory of

Dale Holder

Bill Robson, Keiron McArthur and Leighton Stephenson climbed Ben Nevis and raised £935.

In Memory of

Nicholas Holland

Gemma Macey forwarded a donation of £1,000 raised from a raffe at the Spinney Rally 2019.

In Memory of

Lauren Holly

Lyndsay Butler sent in £497.18 raised at the annual Lavender Fields open day.

Issue 80 | September to December 2019

Our Fundraisers In Memory of

Melodie Holmes

Crystal and team completed a Channel Swim relay and raised £2,255.37.

In Memory of

Jonathan Hooper

• Diane and Peter sent in £100 following a celebration

on their golden wedding anniversary.

• Team “Jonathan Hooper”; Jennifer Anthony, Simon

Hooper, George Hooper, Theo Hooper, Diane Hooper, Peter Hooper and Doreen Jolly, took part in the CRY Heart of London Bridges Walk 2019 and raised £200.

In Memory of

Stewart Howard

Jane Howard sent in £267 raised from yard sales.

In Memory of

Dylan Howells

Andrew Dallimore took part in the Paris Marathon and raised £1,464.40: “The main fundraising event took place in our local cinema, the Rex, Wareham. We hired out the venue to show the ‘LEGO Movie 2: The Second Part’. Julie at the Rex had arranged the event for us and we had over 70 people attend.

With prizes donated from local businesses we had a cracking raffle, a good bar running and some delicious cakes! Add this to a good family film and the afternoon was a real success.

“The training for the marathon had gone very smoothly and the miles had been clocking up nicely. Finally the day had arrived! On a very sunny, but very cold morning there were some 60,000 runners waiting to face the challenge of the 26.2 miles around the very picturesque city of Paris.

www.c-r-y.org.uk

“Absolutely perfect conditions for the run. After lining up on the Champs-Élysée with a delayed start, we were off.

“First around the Place de la Concorde, around the Palais Garnier, past the Louvre, past Bastille, through the wooded area of the Bois de Vincennes, then following the river Seine taking in the Notre Dame (its last day before the fire), the Grand Palais, a spectacular view of the Eiffel Tower, out towards the Bois de Boulogne, past the new Louis Vuitton foundation building.

“At mile 25 I managed to see family and friends, which was just fantastic, giving me the last little boost to get to the finish in a time of 3 hours 28 minutes. A BIG thank you to my sister, Julia – it has all been for her, who managed to phone me at about every 10k or so to see how it was going and have a chat! It really did make a difference Support at mile 25 (left to right): Friends Abbie and Hayley with Sam (my wife), Archie (eldest son) and boosted me each and Euan (youngest son), outside the Louis Vuitton foundation building. time – thank goodness for Bluetooth earphones.

“Thanks also to the help and support from Rhianne Watson of CRY who provided fundraising resources and made the cinema look great with balloons, stickers and posters.

“It really was a fantastic way to see the city and all of the many impressive buildings and parks – I can recommend it to anyone! The crowd was fantastic and there were many thousands of people lining the streets, pretty much every step of the way. Despite there being so many runners, which was busy, it made for a very enjoyable run and a fantastic atmosphere.”

61

Our Fundraisers In Memory of

In Memory of

• Susanna Bustamante sent in £200.

Nicholas and Hannah sent in donations totalling £1,302.50 raised in lieu of wedding gifts.

Alex Hubbard

• Julian Iacoponi sent in £4,049.50 raised at a football

tournament.

• Claire Wadey took part in the London Triathlon and

raised £1,215.

• Jeffrey Hedges sent in £500 made at the request of

ACCF/Sallar Foundation.

• Amelia and Team Hubbard took part in the Finsbury

Park 5k and 10k run and raised £1,562.10:

“On 10 March, a group of friends all took part in the Finsbury Park 5k & 10k in support of CRY. “In 2012, our wonderful, warm and vivacious friend Alex Hubbard passed away at the tender age of 21 as the result of an undiagnosed heart condition.

“Our lives have never been the same, but every year a group of his friends from school gather to do something in his name and raise money for a charity working to prevent this happening to anyone else.

Mark Hudson

In Memory of

Stuart Hudson

Silhill Football Club raised £220 through their annual memorial match: “To commemorate the 10th anniversary of the death on the pitch of Stuart Hudson, Silhill FC hosted the annual memorial match between teams drawn from our club and Stuart’s workmates and pals. As ever, the match was attended by Stuart’s family, although his dad, Mick, wasn’t well enough to join us this year. As it happened, the weekend’s torrential rain prevented the match from going ahead, so an indoor sports challenge was quickly set up. After all, we had 50 portions of curry and rice to deal with! And what a good tournament it was – darts, pool and table football providing a very close finish. The visiting team were the well-deserved winners and received the Stu Hudson Memorial Cup as shown in the photograph.

“The day was wet and VERY windy, but the clouds parted for our run, and amazingly two of our number came 21st and 22nd in the 10k, finishing with amazing times.

“We raised an incredible £1,562.10 from the run alone, and the day was a complete success.”

Amelia Deacon.

“At the business end of the event we jointly remembered Stuart and marked the occasion in a manner with which we are sure he would approve, raising £220 towards CRY’s screening in the West Midlands.” Phil Haynes.

In Memory of

Daniel Hughes

• Sue Hughes took part in the Elworth CC Three Peaks Challenge and raised £2,870.

62

Issue 80 | September to December 2019

Our Fundraisers • David Hughes sent in further donations of £11,585.

• David Hughes sent in £6,009.59, including

£1,004.59 representing donations received in lieu of floral tributes in memory of his mother, Kathleen.

In Memory of

Austin Jackson

Tiffany and Sheila completed Camino De Santiago and raised £1,065.02.

• Jemma Higginson completed a skydive and raised

£1,465.30.

• Peter and Richard took part in a Coast to Coast Cycle

ride and raised £270.

In Memory of

Andrew Hunt

Rosie Hunt took part in the London Marathon 2019 and raised £3,457.

In Memory of

Christopher Hyde

Robyne Hyde sent in £436.46, representing donations received in lieu of floral tributes in memory of her husband.

In Memory of

Ariana Jahangir

Shayan Patel completed a 5k run and raised £2,416.65.

In Memory of

Margaret James

John Ormsby sent in £110, representing donations received in lieu of floral tributes in memory of his mother.

In Memory of

Jack Jarvis

“Team Jarvis”; Paul Byde, Barry Dick, Helena Dick, Heather Dick, Isabelle Dick, Angela Jackson, Anna Jackson, Julie Jarvis and Kit Jarvis, took part in the CRY Heart of London Bridges Walk 2019 and raised £330.

In Memory of

Charlie Ibrahimi

Teresa Driver sent in £350 raised from walking the West Highland Way.

In Memory of

Reece Jeffrey

Mark and Michael took part in a 200km A Day Cycle and raised £477.50.

In Memory of

Michael Ince

• Carlo Safina held a raffle at a pre tour gig at his old

In Memory of

• Sonny and Stephanie took part in the Chester Half

Nancy Jenkins sent in £6,110.01.

school and raised £333.33.

Marathon and raised £255.

• Charles Stanley sent in £150 raised as part of their

charity of the year fundraising.

In Memory of

Camilla Irvine

George Irvine raised £570 from a Tough Mudder.

www.c-r-y.org.uk

John Jenkins

In Memory of

Lucy Adena Jessop

• Ciara Richardson completed 25 marathons in 2018 and raised £102.

• The Deepings School Anthem Trust donated £3,796.14.

63

Our Fundraisers • BGL Group Ltd sent in a matched fund donation of

£960 in support of Oliver Waghorn’s fundraising.

In Memory of

Damien Jewell

David Jewell donated £120.

In Memory of

Lisa Johnson

• Carl

and Eunice Johnson sent in £100.

• Carl and Eunice

Johnson sent in a further £1,000 raised from the Rotary Club of Dulwich and Peckham.

In Memory of

Ethan Jones

• Dominic Toms took part in the London

In Memory of

Tim Jones

Christine Slater held a cake bake and raised £180.

In Memory of

Kieran Joyce

• Glenys Morgan donated £3,500.

• Carolyn Brooks sent in £500 raised from a Shootfest.

In Memory of

Stephen Joyce

Linda Joyce sent in £248 from a memorial cricket match.

Marathon 2019 and raised £1,900.

• Keith Weston sent in donations totalling £425 raised from his talks.

In Memory of

Stephen Jones

Jubilee Fields Community Association raised £1,000.

In Memory of

Natasha Kay

“Team Tash”; Chris Atkins, Kai Ollig, Zac Spence, Isabella Cecci, Jack Berry, Jake Canning, Amy Dimartino, Teresa DiMartino, Vince DiMartino, Alexis Kay, Amy Tuck, Lorna Tuck, Raymond Tuck, George Thornton, Emma Tilley and Paige Westhorpe, took part in the CRY Heart of London Bridges Walk 2019 and raised £400.

In Memory of

Claire Keen

Lena Ormerod sent in £300.

64

Issue 80 | September to December 2019

Our Fundraisers In Memory of

In Memory of

Joe Kelly took part in the Liverpool Half Marathon and raised £1,110.

• Lloyds Bank sent in a matched fund donation of £350 in respect of St George’s Football Club’s match.

Paul Kelly

In Memory of

Ronald Kelly

Marion Kelly sent £440, representing donations received in lieu of floral tributes in memory of her husband.

In Memory of

Jenny Kerwood

Olly King

• Matthew Bayly sent in £350 on behalf of the members of St George’s Football Club who hosted a football match:

“On Saturday 14th September, the annual St George’s University Students vs Legends Football Match took place, raising money for a charity very close to home: Cardiac Risk in the Young. This match had a particular resonance as it took place in memory of St George’s student paramedic and footballer, Olly King, who suddenly and so tragically passed away in April last year.

Anthony Parsons sent in £100.

In Memory of

Sian Kier

“Team Sian”; John Braine and Jean Wyatt, took part in the CRY Heart of London Bridges Walk 2019 and raised £200.

In Memory of

Graeme Kilpatrick

Danielle McKay sent in £1,400 raised at a family fun day.

In Memory of

Harry King

• Laura King sent in £100.

• Debbie Brown, Carly Giles, Andrew King, Samantha King, Jevgenia Ivanova Small, Laura King, Mia Ivanova Small and Jain Mehta King took part in the CRY Heart of London Bridges Walk 2019 and raised £164.

www.c-r-y.org.uk

“We raised a massive £343 for CRY purely from donations on the day of the game. Spectators paid £1 to watch the match, and badges, wrist bands and stickers, amongst other merchandise, were also on sale from a brilliant CRY representative, Carl. Everything we raised and continue to raise is going towards getting a mobile cardiac screening unit to Olly’s home town of Torquay.”

Katie Cottrell.

In Memory of

Adam Knapp

• Coca Cola European Partners sent in £500.

65

Our Fundraisers In Memory of

• Team “Knappy” and “Knappy’s Walkers”; Samantha

Michael Land

Aylwin, Cheri Folkes, Pauline Hall, Ashleigh Jeeves, Eileen Knapp, Jessica Knapp, Emma King, Eve Norris lee, Andrew Watkins and Aaron Watkins, took part in the CRY Heart of London Bridges Walk 2019 and raised £505.

In Memory of

Judith Krish

Jonathan Krish donated £250 in lieu of sending Christmas cards.

• Craig Hewitt took part in the Bolton Ironman Triathlon and raised £231.

• Rhys Herman took part in the Bolton Ironman Triathlon and rased £596.

• Ruth Cain sent in £145 raised from a tombola stall at

a recent screening day.

• Susan Oates and her daughter, Melanie, sent in

£280, representing donations received in lieu of floral tributes in memory of their husband and father, Ian.

• Lynne

In Memory of

Yvonne Laas

Peggy Miller sent in £500 in memory of her daughter.

In Memory of

Philippe Frederick Lacamp

Melissa Ball sent in £803 raised at a memorial service at Canterbury Cathedral in memory of her father.

In Memory of

Jannik Lam

• David Schriefer and Amish Patel

raised £311.26 through collection tins at Specsavers in Fleet.

• Sally Ashton May, Jude Bayly, Birte HarlevLam, Sima Haririan, Susan Higginbotham, Casper Lam, Mun Seng Lam, Apollon Leontas, Nora Lucey, Rona McCandlish, Jennifer Woods, Rona McCandlish, Julie Martin, Rod Martin, Duncan Woods, Mary Talbot, Allen Talbot, Elodie Talbot, Malcolm Talbot, Elizabeth Talbot, Jane Talbot, Katie Harvey, Kay Dounes and Mick Harvey took part in the CRY Heart of London Bridges Walk 2019 and raised £950.

In Memory of

Andrew Lancastle

Laura Lancastle, Ryan Lancastle and Matt Allen took part in the CRY Heart of London Bridges Walk 2019 and raised £420.

66

Tomlin at the Coffee Lounge held a raffle and raised £745:

“Lynne and her team at the Coffee Lounge, Pontefract, ran a spring/summer raffle in aid of Michael Land’s memorial fund for CRY. Lynne’s son, Andrew, was a school friend of Michael. £745 was raised, including £25 from Pontefract and District Probus.” Ruth Cain.

In Memory of

Carli Lansley

Karl Lansley sent in a donation of £4,000 towards a screening day.

In Memory of

Miriam Lee

• Nicola Lee sent in £250 raised from the 1101 (Kettering & District) Air Cadet Squadron’s curry night.

• Team “Miriam’s Marchers”; Nathanael Crisp, Nicola Lee, Eleanor Martin, Kate Martin, Paul Martin, Charlie Pearson, Katie Searle, Jacki Threadgold, Anita Tyagi, Erin Wootton and Emma Scofield, took part in the CRY Heart of London Bridges Walk 2019 and raised £130.

Issue 80 | September to December 2019

Our Fundraisers In Memory of

Jonathan Leigh

• David Leigh took part in the Prudential

RideLondon-Surrey 100 and raised £950.

• Keith Shuttler took part in the Prudential

• John Madden donated £1,000.

• A team from PDR Construction Ltd took part in a Tour

of Europe and raised £2,522.50.

• Graham and Jenny sent in donations totalling £835.

RideLondon-Surrey 100 and raised £857.

In Memory of In Memory of

Adam Lewis

• Liz Barratt sent in £250 raised through

a sponsored bike ride.

• Liz Barratt and team NWF completed

the Liverpool to Chester Bike Ride and raised £1,487.10.

• Peter and Kim sent in a further £10,000 raised

Lauren Long

• Chris Fox sent in £353.50 raised at the Wexham

Bowls Club Annual Charity Bowls event.

• Kenneth Mortimer, Faye, Carl, Steven and Dale took

part in the Windsor and Eton Half Marathon and raised £1,515.26.

• Claire Kauppila took part in the CRY Heart of London

Bridges Walk 2019 and raised £255.

through The Adam Lewis Effect.

In Memory of In Memory of

Joseph Leyland

• Bradley Curwen organised a bake sale

and non-uniform day for the National 3 Peaks in 24 hours and raised £452.

• Bradley, James, Jen, Nikki, Josh and Charlotte took part in the National Three Peaks in 24 Hours challenge and raised a further £1,075.

Sarah Long

• Team “The Wolf Pack”; Isla Banson,

Hugo Buckler, Emma Bonney, Elliott Banks, Poppy Bonney, Isabella Fuschillo, Suzie Long, Paul Long, Oliver Long, Alice Long, Aimee Long, Jessica Long and Simon Smith, took part in the CRY Heart of London Bridges Walk 2019 and raised £3,560.

• Alice Long held a bake sale and raised £100.50.

• Karen Littleton and family donated £400 in memory

of her father, Stanley Bell.

In Memory of

Martyn Luckett

In Memory of

David and Roy Livesey

Rae Livesey held monthly coffee mornings and raised £575.60.

In Memory of

Jamie Loncaster

• Peter and Susan donated £200 to commemorate Jamie’s 18th birthday.

www.c-r-y.org.uk

• Brenda Luckett sent in £7,040.73, including £226.43 raised at a recent screening.

• Robin Wreede took part in a charity fight night and raised £260.

In Memory of

Matthew Luke

Katherine Luke sent in £400 raised from the Lyons Karate Club and Ben Lumley from his cake sale.

67

Our Fundraisers In Memory of

Alan Lumley

• Tom Richardson donated £10,000 towards screening and research.

• DLA Piper UK LLP completed the Great Manchester Run 10k and raised £664.

In Memory of

Natalie Lungrin

Carla Connolly took part in a pink collar boxing event and raised £556.02.

In Memory of

James Macknight

Sandra Macknight donated £100 in memory of her grandson.

In Memory of

In Memory of

John Magowan

Lotty Romaniszyn took part in the Carlisle Half Marathon and raised £907.25.

In Memory of

Joshinder Manku

Team “Jo-Walking”; Simran Bansal, Jovan Bansal, Parminder Bansal, Daljit Bansal, Manjit Bansal, Harminder Bassan, Varinder Bassan, Jeevan Bassan, Easher Bassan, Satvinder Dhamu, Jaswinder Dhamu, Avneet Dhamu, Jeevan Dhamu, Amar Dhamu, Amritpaul Ghatora, Supinder Ghatora, Kiren Ghatora, Rajvir Ghatora, Perry Manku, Jag Manku, Simran Manku, Jaipreet Manku, Navraj Manku, Damini Manku, Jatinder Manku, Rajan Manku, Josh Manku, Sunny Manku, Rhea Manku, Samraj Manku, Hardeep Marwaha, Pavandeep Marwa, Tina Marwa, Amandeep Marwa, Sukh Rai, Jagtinder Rai, Samraj Rai, Balvinder Ruprai, Utam Seehra and Arvinder Seehra, took part in the CRY Heart of London Bridges Walk 2019 and raised £1,303.18.

Andrew Macleod

• Murdo and Dolina sent in £183.50 raised at their recent screening day.

• Murdo Macleod forwarded donations totalling £101, including: £51 Kathleen Murray raised from a collection pot in the Western Isles Council Café; and a £50 donation from Ishbel and Duncan Macleod.

• Dena Macleod sent in £1,000 from the Hebridean

Housing Partnership.

• Etta Macdonald sent in £500 in memory of her

husband, John Norman Macdonald.

In Memory of

David MacMillan

Shaun and Fergus sent in £744.50 raised through the Deeside Way Bike Ride.

68

In Memory of

Balinder Mann

• Team “Binny”; Harinder Gill, Balbinder Chutti, Jarinder Mann, Narinder Mann, Jaskiern Mann, Tanisha Mann, Calvin Mann, Harbinder Mann, Hardip Mann, Karmjit Mann, Lavina Mann, Paige Mann, Pavendeep Mann, Bhagat Mehat, Mohan Mehat, Ravinder Mehat, Rapinder Mehat, Kulwinder Randhawa, Ruth Thompson and Peter Thompson, took part in the CRY Heart of London Bridges Walk 2019 and raised £1,029.83.

• Jarinder and Narinder

forwarded a donation of £1,000 from Sandip and Sukh Johal:

“On Saturday 28 September, Sandip and Sukh Johal raised £871 at a charity event arranged by themselves at their home, in memory of

Issue 80 | September to December 2019

Our Fundraisers In Memory of

Peter Maskhadov

Sandra Page sent in £510.02 raised by parents, pupils and staff of Saint Cecilias Church of England School.

In Memory of

Dean Mason

• Simon Hart sent in £200 from Landsker Business Club.

• Gwenfair Mason forwarded £835 raised at the Camrose Vintage Working Day.

Balinder Mann. Because they did so well we decided to round it up to £1,000. The event went very well with an excellent turn out to raise awareness of CRY. Well done to them both.” Narinder Mann.

In Memory of

Ollie Marsden

Kevin Marsden sent in £165, representing donations received in lieu of floral tributes in memory of Ollie’s grandfather, Ron Spearling.

• Shaylyn Mason raised £227.60 from her New Year’s

Day swim in memory of her dad:

“My daughter, Shaylyn Mason, currently age 9, did the New Year’s Day Swim in Saundersfoot in memory of her dad, Dean Mason, who died when he was 26 years old of an undiagnosed heart condition (Shaylyn was 1 year and 4 months at the time). Shaylyn asked if she could do the swim with just a couple of weeks to go; she didn’t think we had enough time to organise a fundraising pack or get sponsors but she pulled it off.

In Memory of

John Leonard Marsh

John Marsh sent in a further £100 raised in memory of his father.

In Memory of

Lewis Marsh

Gill Weston sent in screening donations totalling £230.

In Memory of

John Marshall

Maureen Marshall sent in £250 raised from collection boxes at Edge Hill University.

www.c-r-y.org.uk

“So far, Shaylyn has raised just over £200. The sign was hand painted by her sister Teagan (age 16), and Shaylyn did the swim with Mitchell Nixon (step-father) who also helped make the sign. Shaylyn was supported on the day by many family members and friends!” Shauna Mason.

In Memory of

Pete McAvoy

• The Northside Charitable Trust sent in £500.

69

Our Fundraisers • Anne McAvoy sent in £2,000.

• Anne and her team completed a 100km cycle and

walk and raised a further £884.67.

“Drinks (Pimms for the adults and helpers) and sweets were provided. The BBQ was changed to an indoor ‘grill’ due to inclement weather. With generous donations from parents the amount raised is just over £3,000 going to the James McGowan Memorial Fund for research and screening of young people.” Ellery McGowan.

In Memory of

In Memory of

Michael McCarthy took part in the London Landmarks Half Marathon 2019 and raised £587.

Tom Machell sent in £1,019.90, including £275 collected at his performance of ‘Ticker’.

Amanda McCarthy

In Memory of

Michael McCullough

Lisa McCullough sent in £358.33.

Stephanie McLean

In Memory of

Stephanie McLean and James Pettifer

Michael Curtin took part in the Prudential RideLondon-Surrey 100 and raised £785.

In Memory of

James McGowan

• Sean Conolly took part in the Royal

Parks Half Marathon 2019 and raised £811.70.

• Charterhouse School sent in £1,380 raised from entry fees to Ellery’s Aquathon and also from ticket sales from a charity dinner.

• Ellery McGowan sent in £2,755 raised from the

In Memory of

Josh Merrick

• Callum and Lewis Merrick organised a memorial football match and raised £425.30.

• Orien Mojdeh completed the Great Manchester Run 10k and raised £304.

Aquathon at Charterhouse:

“On Sunday 16th June, 22 athletes took part in the second Aquathon for Cardiac Risk in the Young at Charterhouse. They swam 200m followed by a 2.5km run.

Medals were awarded with the CRY logo for 1st, 2nd and 3rd place in Under 14, Under 16, seniors, Girls and Beaks, and random prizes were drawn from race numbers.

70

In Memory of

Richard Merriman

• Nicola Merriman took part in the Nordic Walk and sent in a further £530.

Issue 80 | September to December 2019

Our Fundraisers • Nicola Merriman sent in £220, including: £165 raised

friends and family popping in to buy cakes etc, or sit with a coffee and cake for a chat.

from a raffle; £25 from their collection box; and £30 from Mandy Taylor from a collection box at her workplace:

“We had a craft sale at my house on November 9 and we also had a raffle in aid of CRY in memory of our son, Richard. We had a great day and we did the same as we do at our cake sales – all the furniture goes outside so we can make up our stalls inside! Lots of our family and friends came! We raised £165 at our raffle.” Nicola Merriman.

In Memory of

“We were delighted to raise £1,200 for CRY through Sam’s memorial fund, and hope this will bring us nearer to be able to fund a screening day. Thank you to all who came and helped us achieve this fantastic amount.” Sally Moodey.

John Millar

• Maureen Hulbert took part in a 2016 Tough Mudder and raised £273.

• Kirsty, Scott and Barry completed Devil o’ the Highlands Footrace and raised a further £884.67.

In Memory of

Jonathan Morgan

Carol Tebboth sent in £200.

• Kirsty MacMillan sent in £1,245.

In Memory of

Levon Morland

In Memory of

Shelly Mills

Leoni organised a Christmas fayre in 2014 and raised a further £3,780.

In Memory of

Sam Moodey

• Emily Moodey took part in the Great

North Run 2019 and Royal Parks Half Marathon 2019 and raised £3,830.

• Adam Crosby organised a cake sale and raised £1,270:

“On Saturday 12 October 2019 we held a cake sale for CRY in memory of Sam Moodey. As well as a huge number of home baked cakes, we sold homemade jam and chutney, plants, and had a large raffle. It was a successful day with many

www.c-r-y.org.uk

Grant Coles completed the Newcastle to Durham Charity Walk and raised £100.

In Memory of

Owen Morris

• Judith and Bev sent in a matched fund donation of £1,000 from the 54321 Cymru in respect of their cycling challenge through Northern France.

• Roger Morris sent in £160 raised by Llanedeyrn

Boxing Club.

In Memory of

David Moss

• Dawn Moss sent in donations totalling £185.

• Laura Few and Team WFT took part in the Three Peaks Challenge and raised £115.

71

Our Fundraisers In Memory of

In Memory of

Luke Moss

Bethany Mycroft

Tarren, Gary and Craig completed a cycle from Germany to the UK and raised £805.

• Helen Thrupp sent in £4,019.16 raised by the students at QEGSMAT. • Queen Elizabeth’s Grammar School took part in the Tunnels and Trails 10k and other events and raised £395.

In Memory of

Kate Mottram-Clarke

• Pebble Brook Primary School sent in £227.50.

• Conrad and Alison Mottram sent in £107.59

in memory of their daughter.

• Dorothy Bailey held a bottle raffle and raised £100.

In Memory of

Paul Mulford

• Adrian and Amanda

sent in £2,400 raised as follows: £517 from Dawn and Robert Mycroft; £476.50 from Brian and Elaine Lilliman; £416.40 from David Glossop; £543.10 from Clowne Summer Gala; and £447 from Tupton Summer Gala.

Colin Mulford and Sandra Mulford took part in the CRY Heart of London Bridges Walk 2019 and raised £300.

In Memory of

Grant Munro

Mike Munro took part in a bike ride and raised £1,693.84.

In Memory of

In Memory of

Pardeep Nagra

James Murgatroyd

• Lloyds Bank sent in a matched fund

• Gary and Rose sent in £562.24 raised

donation of £1,500 in respect of Lindsey Malpass, Kathryn Hall and Jessica Blune’s fundraising.

from at their recent screening event.

• Repton Parochial Church Council sent in £120.50 raised through donations received at Alex and Sam Stuart’s wedding in May.

• Sarah Fuller organised a coffee morning and raised

£150.

• Julie Foster sent in £100 on behalf of her work

colleagues at Riviera Travel.

In Memory of

Ralph Murwill

Pippa, Martine, Jess and Bridget completed the Richmond Physiotherapy Richmond To Paris Cycle and raised £1,073.

72

In Memory of

Lizzie Nee

• Dawn and Simon held a party to celebrate the birthdays of Dawn’s mum Doreen (90), Dawn (60), Emma (30) and their niece Samantha (21), and requested donations, totalling £1,250 in lieu of gifts.

Issue 80 | September to December 2019

Our Fundraisers • “Team Lizzie” and “Team Nee”; Dawn Carter, Simon

Carter, Cath Nee, Murray Nee, Alan Meisner, Julie Meisner, Frank Murphy, Lisa Murphy and Michael Yates, took part in the CRY Heart of London Bridges Walk 2019 and raised £940.

In Memory of

Jennifer Newton

• Emma Gold sent in £225.

• Windmill Hill Primary School took part in a non uniform day and raised £300.

• Janet and Gill completed the Cleveland Way Walk and

raised £2,410.

In Memory of

Sean O’Brien

Aileen Hankin sent in £110 raised from a rugby World Cup sweepstake.

In Memory of

Ben O’Connell

• Mark and Cathy sent in £600 raised at a fundraising event held at Sainsbury’s.

• Mark and Cathy sent in £345 representing donations received in lieu of floral tributes, in memory of their son.

• West Sutton Little League donated £100.

• Claire and Dave took part in Sober for October and

raised £2,301.

In Memory of

James Nicholas

Chris, Mike and Simon took part in Survival of the Fittest in 2014 and raised £260.

In Memory of

Jason Nixon

“Team Nixon”; Vicky Theaker, Richard Theaker, Joshua Nixon Theaker and Theodore Theaker, took part in the CRY Heart of London Bridges Walk 2019 and raised £640.

In Memory of

• Anthony Nyman sent

in £1,100 raised at the AnticsBEATS fitness class:

“A fitness class was held with over 100 adults and children exercising with a live DJ in class, all in memory of Ben O’Connell to raise £1,100 for CRY. “Ben used to attend Antics classes along with his mum, Cathy. Cathy attended the AnticsBEATS FOR BEN class, along with Ben’s sister, Scarlett, and many of his friends.

“Scarlett and Ben’s friends joined the trainers in the middle to help teach the class, with many of Ben’s favourite songs being played throughout.

In Memory of

“Ben was just 14 years old when he passed away from an undiagnosed heart condition.

Our thoughts are with Ben’s mum Cathy, dad Mark, sister Scarlett, and all of Ben’s friends.

Alice Hall completed the Edinburgh Marathon and raised £367.50.

“You’ll always be in our thoughts, Ben.”

Peter William Norman

Maureen Fletcher sent in £100 in memory of her son.

Ben Obiora

www.c-r-y.org.uk

73

Our Fundraisers In Memory of

Kevin O’Flynn

Rosalyn Stevenson, took part in the CRY Heart of London Bridges Walk 2019 and raised £1,268.50.

Elaine and Andrew completed the Coast to Croagh Cycle and raised £1,317.

In Memory of

Ceri Palmer née Howells

In Memory of

Robert O’Kane

Craig Dingwall held a charity evening and raised £125.

“Team Ceri”; Virginia Fletcher, Tom Fletcher, Alison Howells, Joel Howells and Emily Miles, took part in the CRY Heart of London Bridges Walk 2019 and raised £436.

In Memory of

Abigail O’Keeffe

Team “Abbie’s Army of Angels”; Paula Edmonds, Evie Edmonds, Elizabeth Hicks, Clare O’Keeffe, Sian O’Keeffe, Emily O’Keeffe, Iris O’Keeffe, Emma Ratcliffe and Alex Ratcliffe and Rachel Hicks, took part in the CRY Heart of London Bridges Walk 2019 and raised £832.23.

In Memory of

Andrew Oliver

Pamela Girvan organised a charity night and raised £770.

In Memory of

Gregory Palmer

Janet Palmer donated £250.

In Memory of

Robert Palmer

“Team Robert”; Helen Best, Alison Elliott, Irene Palmer, John Palmer, Harry Watkin, Jack Watkin and Nadine Watkin, took part in the CRY Heart of London Bridges Walk 2019 and raised £850.

In Memory of

Amy Osborne

• Bridget Marr donated £150 in lieu of sending Christmas cards.

• Melanie Gooder sent in £3,000 on behalf of The Samuel Storey Family Charitable Trust.

• Mr Laurie and friend Alex organised a charity party

‘Cherryfields 2019’ and raised £500.

In Memory of

Andrew Parr

Ruth Lowe sent in £771.30, including: £380 from the Heartfelt Group; £191.30 raised through a recent screening event; and a further £200.

• Adrienne Owen donated £100.

In Memory of In Memory of

Thomas Padmore

“Tommy’s Team”; Lesley Fry, David Fry, Rachel Fry, Hannah Fry, Karen Padmore, Paul Padmore, Andy Stevenson and

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Christopher Parr

• Leek County Cricket Club donated £100.

• Lucy Phillips took part in the Potters ‘Arf Marathon and raised £365.

Issue 80 | September to December 2019

Our Fundraisers In Memory of

In Memory of

Christina Corrigan sent in £912 raised at the ALS Inspection UK Ltd Family Fund Day.

Karen Pearmine sent in £958 raised through a quiz night.

Daniel Parry

Adam Pearmine

In Memory of In Memory of

Kevin Paterson

• Micki Kram sent in £245 raised from a sponsored head shave.

• Patricia Toft sent in £204 raised from a raffle where Kevin’s father, John, was playing.

• Robert Bass took part in the Great North Run 2019

and raised £220.

In Memory of

James Patrick Patterson

Peter Patterson sent in £225 donated from the proceeds of his winning premium bond and from his winter fuel payment.

James Pedersen

Cath Walker took part in the CRY Heart of London Bridges Walk 2019 and raised £215.

In Memory of

Emma Peek

Patrick and Martin completed the Devizes to Westminster International Canoe Race and raised £1,195: “Patrick Harrison, a family friend of Emma’s family, and his paddling partner, Martin Wood, spent their Easter weekend taking part in the Devizes to Westminster Canoe Race. The race is described as the Everest of the kayaking world and starts in Devizes in Wiltshire. It runs 125 miles along canals and the River Thames with 77 portages needed to negotiate locks and low bridges and finishes under Westminster Bridge.

In Memory of

Jenni and David Paul

Caitlin Garrett took part in the Great Aberdeen Run and the Scottish Half Marathon and raised £1,135.

In Memory of

Fletcher Payne

Dean Symes took part in the London Marathon 2019 and raised £2,401.20.

In Memory of

Connor Pearce

Mike Brett, Pauline Brett, Deborah Campbell, Brenda Campbell, Hayley Campbell, Alan Davey, Jean Davey, Harry Davis, Shanice Dando, Grace Dawkins, Anthony Pearce, Dorren Pearce, Mark Pearce, Donna Pearce, Dave Pearce, Lauren Pearce, Ethan Pearce, Tracey Willats, Dave Willats and Archie Walkington took part in the CRY Heart of London Bridges Walk 2019 and raised £210.

www.c-r-y.org.uk

“This year’s race was undertaken in hotter than expected temperatures and very little flow on the canals made the trip even more arduous and gruelling for all the 120 or so boats that started.

Patrick and Martin are both exmilitary and described the race as one of the most brutal things they have undertaken and it could not have been completed without the support of their wives and families. They say never again – well, until next year, maybe… if allowed!” Patrick Harrison.

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Our Fundraisers In Memory of

Jonny Peel

Victoria Walton sent in £500 donated by close friends at Jonny’s memorial service.

In Memory of

Benji Percival

David McKnight completed the Milton Keynes Marathon and raised £125.

In Memory of

James Pettifer

Tomasz Rydzewski donated £500.

In Memory of

Alexis Phillips-Martin

Jessica Phillips-Martin held a charity fun day in 2014 and raised £600.

In Memory of

Andi James Pickering

Sharon Levett donated £100 in memory of her brother: “Instead of sending Christmas cards, we wanted to donate to help raise awareness, support, screening and research for a charity close to my heart. We are being screened ourselves. All in memory of my beloved brother, who died last year of SADS.”

In Memory of

Jake Anthony Pickford

In Memory of

Jamie Phillip

Martin Phillip sent in £330 raised from the Stockport County raffle.

In Memory of

Christopher and Steven Phillips

• Craig Phillips raised

£6,203.20 through his JustGiving page.

• Jane Phillips sent in £5,000 raised through The Heart

of Weston fundraising activities and from donations at a recent screening event.

In Memory of

Rebecca Phillips

• Sharon Topple at STE Independent Celebrant & Events sent in a further donation of £1,333.50.

• Julie and Peter sent in £397.

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Gaye Pickford sent in £2,500.86, including: £350 raised from a pen sale; £110.23 raised from collection boxes; £200 raised from sales of CRY pens; £1,489.63 raised through an annual football tournament; and £351 raised from a pen sale, auction and collection box.

In Memory of

James Pilfold

• Helen Kaye raised £1,062.81.

• Team “Pilfords Pilgrim’s”; Naomi Aspden, Lezlee Blackburn, Justine Benstead Schlup, Kate Benstead, Matthew Benstead, Rhian Benstead, Claudia Benstead Schlup, Nathaniel Benstead, Rebecca Benstead, Gabrielle Benstead, Sienna Benstead, Zachary Benstead, Zoe Colville, Nelson Cooper, Kaye Cooper, Keitha De Vere-Pass, Deborah Fox, Mark Fox, Richard Frith, Karen Fryer, Esther Harris, Rich Hurn, Helen Kaye, Judy Kaye, Jordan Langridge, Timothy Lowe, Susannah Lowe, William Lowe, Oliver Lowe, Luke McCarthy, Jess Kinnear, Lee Rowe, Julia Scott, Daniel Thompson, Ellie Nightingale, Charlie Nightingale, Paula Brown, Peter Silvey, Yvonne Silvey, Sarah Slee, Ashley Smart, Kriss Woodhead, Lyn Yorke, Alex Schlup, Daisy Harris, Mollie Cooper and Nelson Cooper, took part in the CRY Heart of London Bridges Walk 2019 and raised £510.

Issue 80 | September to December 2019

Our Fundraisers In Memory of

Sara Pilkington

• Collingwood College held a charity

fashion show and raised £265.

• Thilo Goss forwarded a donation of

£13,064.01 raised from a fashion show.

• Stephen, Nadia and Team Run for Ally took part

in the Hampton Court Half Marathon and raised £39,503.23.

• Luca Fusco took part in the Kipling Charity Swim and

raised £1,995.

• Haileybury School sent in £2,105.08.

• Team “Walk for Ally”; Ava Portia Finlay, Fiona Finlay,

In Memory of

John Pirie

• Gulberwick Hall Committee donated £200.

• Katrine Johnson and family sent in £901 following a collection at the funeral of Anna Johnson.

• Jane Gray, Heather Gray, Jane Macaulay and Dorothy

Thompson orgainsed a buffet night in the Haroldswick hall on the island of Unst and raised £2,105.

Jennifer Finlay, Dana Fiori, Alessia Brimson-Fiori, Elena Gregori, Loretta Gregori, Jake Iesini, Natascia Iesini, Serena Iesini, Tania Iesini, Monica MazziO’Sullivan, Amanda Moretto, Antonio Moretto, Benedict Moretto, Massimo Moretto, Ella O’Sullivan, Sienna O’Sullivan, Maia O’Sullivan, Lara O’Sullivan, Nadia Pomfret, Stephen Pomfret and Joanna Seagon, took part in the CRY Heart of London Bridges Walk 2019 and raised £598.

In Memory of

Richard Ponting

• Siobhan Pirie sent in £7,677.45 raised as follows:

Rita Ponting sent in £1,091.30, including: £951.30 from holding a coffee morning; and £140 from donations.

• Agnes Farquhar sent in a donation of £792 in

In Memory of

£2,535 raised by her local toddler group during a sponsored cycle/walk; £5,092.45 raised from a grand raffle and Sunday teas event in the Gulberwick Hall; and a £50 donation from Maureen Cumming. memory of Lorna Farquhar.

• Cunningsburgh Hall Committee donated £1,200.

• Siobhan Pirie sent in £1,530 from Brian Hunter,

representing donations received in lieu of floral tributes in memory of his wife, Margaret Hunter.

• The Sandison Trust in Shetland donated £1,000.

Craig Daniel Powell

• Luke Powell sent in £700 raised by Whiteheads FC. • “Team Pringle”; Helen Fleming, Karen Fleming, Holly Grumley, Luke Powell, Mark Powell, Anne Rowe, Jim Rowe, Marlene May Upham, Rodney Upham and Howard Williams, took part in the CRY Heart of London Bridges Walk 2019 and raised £609.53.

In Memory of

John Plant

Marie Plant forwarded donations totalling £315 raised at her mum’s birthday in lieu of gifts.

In Memory of

Alessandro Pomfret

• Haileybury College sent in £3,114.43

raised through their fundraising activities.

www.c-r-y.org.uk

In Memory of

Robert Poysor

• Diane Tolley sent in £300 in memory of her son.

• Diane Tolley sent in £267 raised by The Horn and Trumpet in Bewley through their Christmas shopping fair.

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Our Fundraisers In Memory of

Alden Price

“Team Alden”; Emma Baker, Jack Baverstock, Todd Brewer, Graham Brewer, Jill Brewer, Karen Jacobs, Haydn Knox, Harry Levine, Rachael Maywood, Angela Price, Ian Rickhuss, Brenda Stone, Mathew Stone, Isabelle Stone, Charlotte Stone, Ellise Stone, Jason Stone, Patricia Watkins and Paul Watkins, took part in the CRY Heart of London Bridges Walk 2019 and raised £710.

In Memory of

Robbie Price

Team “Robbie”; Mary Vincent, Michael Vincent, Raymond White and Sally White, took part in the CRY Heart of London Bridges Walk 2019 and raised £1,540.

In Memory of

Tanja Price

Killian Hurley sent in £1,000 on behalf of Bradley Goding at Mount Anvil.

In Memory of

Jeffrey Prosser

Dawn Phillips sent in £420, representing donations received in lieu of floral tributes in memory of her brother.

In Memory of

Stuart Pybus

Joan Pybus forwarded £190 donated by the Ukulele Orchestra, in memory of Gerry Pybus.

In Memory of

Gemma Quew

• Andrew Quew sent in £300 from the

Asda Foundation and a further donation of £150.

• Andrew Quew and Helen Barnes sent in

78

£502.50 raised from a quiz night: “Andrew Quew and Helen Barnes from Ryde hosted a quiz night at Binstead Community Centre on the Isle of Wight to raise money and awareness in memory of Andrew’s wife, Gemma Quew, and in aid of CRY. Gemma was only 30 when she passed away in 2011 from an undiagnosed heart condition.

“The money will be used to help the Gemma Quew Memorial Fund host a day’s cardiac screening on 16th November 2019, to screen 100 young people on the Isle of Wight to look for possible heart conditions.

“The quiz night was well attended, with 16 teams battling it out for first place.

Andrew Quew spoke about CRY and played a video of his daughter, Caitlin, giving a speech at the CRY Parliamentary Reception. Question master Steve Barnes ran the quiz, involving everyone in the games of ‘Heads & Tails’ and ‘Guess the number of sweets’. It was a fun evening with some taxing questions and the winning team was ‘The Butcher Boys’.

“Each team kindly donated raffle prizes and along with special vouchers from Island businesses – ASDA, White Hart Inn, Dinosaur Isle, Isle of Wight Steam Railway, Bartletts Service Station and Hummingbirds Beauty Salon – a total of 45 prizes were given out, raising over £470.

Clare Jones, Community Champion at ASDA, Newport, donated a beautiful hamper from ASDA who are very kindly topping up our fundraising total for which we are so grateful.

“Thank you to everyone involved for their support.”

Andrew Quew.

In Memory of

Ketan Radia

Mark Smith and team took part in the Leicestershire Memory Walk and raised £1,363.50:

Issue 80 | September to December 2019

Our Fundraisers “On 27th to 31st March 2019, over 100 walkers were blessed with fantastic weather on a 102-mile walk around Leicestershire known as the Leicestershire Round.

The walk was arranged by Mark Smith and his sister Mary-Anne Johnson to raise funds for three charities remembering their brother, Steven, and particularly CRY in honour of Mark’s work colleague, Ketan Radia. Nine walkers undertook the full 102-mile challenge with others joining for either a day or a smaller section of the walk on their own personal challenge. The walk has raised over £26,000 for the three charities with a third being raised for CRY, as well as raising awareness from television and radio interest.” Mark Smith.

In Memory of

Claire Louise Reed

• The Hampshire Cricket in the Community donated £10,000 raised at the Lashes Lunch and Fashion Show.

• Paul Knappett completed a bungee jump in

2014 and raised £230.

In Memory of

Paul Rees

Kimberlley and Adam raised £265 from the FCC v St Clears - PR6 Memorial Shield: “FC Carmarthen 3-3 St Clears (St Clears win 4-3 on penalties).

“Tonight we played our first memorial shield match in honour of our captain Paul Rees, who sadly passed away in March from a cardiac arrest. We have several photos on our page @fccarmarthen on Facebook should anyone wish to see the night in highlights!

“Sadly, we did not win, having held Pembroke shire league

Division one outfit St Clears AFC to a 3-3 draw and lost 4-3 on penalties.

“We have bought a shield in Paul’s memory and each year we will play this fixture and aim to raise money for CRY.” Adam Butler.

“A total of £265 was raised from a football match played in July between Paul’s team FC Carmarthen against a local team St Clears. This match is now to become an annual event called PR6 Memorial Shield raising much needed funds for CRY. This match has been organised by Paul’s close friend and football manager, Adam Butler.” Kimi Rees.

In Memory of

Alex Reid

• Rosalyn Barber donated £505.

• Amanda Fields took part in a sponsored walk and raised £205.50.

• Sheffield High School for Girls sent in £791:

“The sun was shining on Saturday as the day got off to a competitive start for the sixth annual Alex Reid Memorial Tournament.

“Sheffield Girls’ hosts the netball tournament in memory of much-loved former pupil, Alex, who sadly passed away in June 2012 of an undiagnosed heart condition. The day is a celebration of Alex’s life and raises money for CRY. “This year, CRY were able to join us to provide all netballers and the wider Sheffield Girls’ community the opportunity to have free cardiac screenings. We’re really pleased to announce we screened 112 individuals on the

www.c-r-y.org.uk

79

Our Fundraisers In Memory of

Debbie Rendle

• Brian and Margaret Stephens sent in £250.

• Emily and Chris Pezzack completed a Mount Snowdon climb and sent in £573.

In Memory of

Michael Richards

day with more on Sunday at Kiveton Park Surgery, where Alex’s dad, Dr John Reid, is a GP and senior partner.

“Alex’s mum, Heather Reid (a local physiotherapist and former lecturer at the University of Nottingham), said, ‘Netball was a huge part of Alex’s life and she played to a very high standard, regularly representing both her school and club at county level. It has always seemed so fitting for us to hold this tournament in her memory.

It’s such a celebration of her life and recognition of the overwhelming and unfaltering support we receive from Sheffield Girls’, its staff, sports department, and the entire school community.’

“A big thank you to all involved in organising another great tournament and to all who participated on the day.”

Abigail Richards took part in the Great North Run 2019 and raised £970.

In Memory of

Edward Ridgway

Rosanne Meek sent in £460, representing donations received in lieu of floral tributes in memory of her father (Edward’s gradfather) Louis Ridgway.

In Memory of

Jack Lewis Riding

Joe, Peter, Kieran and Joe completed the Liverpool Half Marathon and raised £2,269.40.

In Memory of

Evan Robertson

In Memory of

Thomas Reid

• Philp Makepeace sent in £100 raised from the NFL predictions league.

• Halina and Antony sent in £1,845 raised

from Tomfest 2019.

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“Team Robbo”; Brogan Lewis, Chloe Robertson, Lana Robertson and Tom Stimson, took part in the CRY Heart of London Bridges Walk 2019 and raised £415.

In Memory of

Sabrina Roddy

Carol Roddy and Terry Roddy took part in the CRY Heart of London Bridges Walk 2019 and raised £200.

Issue 80 | September to December 2019

Our Fundraisers In Memory of

• Francesco Glove organised a Fantasy Football League

Team “Sian”; Chantelle Ball, Stephen Ball, John Braine, Joan Braine, Marie Browne, Thomas Browne, Michael Browne, Katie Browne, Molly Browne, Katherine Campion, Richard Campion, Sebastian Campion, Edward Campion, Isobel Campion, Val Gedge, Greta Faulkner, Patrick Griffin, Susan Griffin, Anna Griffin, James Griffin, Kathy Griffin, Helen Harris, Martin Harris, Libby Harris, Samuel Harris, Maria Kirby, Andrew Kirby, Lindsey Lee, Andrew Lee, Wendy Ellis, Stuart McDonald, Laura McDonald, Emily McDonald, Harrison Lee, Brandon Lee, Jean Wyatt, Callum Roger, Bernie Sharkey, Joe Sharkey and Vinny Sharkey, took part in the CRY Heart of London Bridges Walk 2019 and raised £400.

• Jacqueline Rowan sent in £1,170 raised at the

Sian Roger

and raised £270.

Hayfield Community Centre fundraiser, in memory of Robert and Jody.

• Sally Stephens sent in £906.77 collected at Brentford

Football Club.

• Matt McPherson completed the Edinburgh Half

Marathon and raised £685.

In Memory of

Adam Rowbottom

In Memory of

Luke Rogers

Helen Watts raised £400 in lieu of 25th wedding anniversary gifts.

• “Team Adam”; Ulrike Rowbottom, Anthony Rowbottom and Dillon Rowbottom, took part in the CRY Heart of London Bridges Walk 2019 and raised £180.

• Abingdon-on-Thames Town Council donated £750.

In Memory of

Robert Rowan

• Anthony, Michael and Sam took part in the Edinburgh Half Marathon and raised £916.

• Debbie Millar took part in the London

Landmarks Half Marathon 2019 and raised £840.

In Memory of

Jemma Rozier

Team “Jemma”; Rosemary Clarke, Poppy Clarke, Judith Forbes and Clare Rozier, took part in the CRY Heart of London Bridges Walk 2019 and raised £194.

• Victoria Marshall took part in the London Landmarks

Half Marathon 2019 and raised £640.

• Joyce Davies took part in the London Landmarks Half

Marathon 2019 and raised £1,060.

• Laura Falconer took part in the London Landmarks

Half Marathon 2019 and raised £1,404.

In Memory of

Christopher Rushton

Christine Rushton took part in various fundraising activites and raised £875.

• Dawn Busby took part in the London Landmarks Half

Marathon 2019 and raised £670.

• Debbie Millar took part in Rab’s Rough Runners and

raised a further £473.13.

• Jacqueline Hyland donated £100.

• Susanne Rowan donated £500 raised at the

In Memory of

Amy Jayne Russell

Amy Aylett organised ‘Amy’s Sunshine Charity Ball’ and raised £2,158.

“Remembering Robert Run”.

www.c-r-y.org.uk

81

Our Fundraisers In Memory of

Luke Rutter

• Matthew and Roslyn Wallace donated £3,870 in lieu

of wedding gifts.

Jill Rutter donated £300.

In Memory of

Dipesh Shah

In Memory of

Suanu Saro-Wiwa

Nishma Sharma donated £550 following the death of her brother.

• Hugo Ward took part in the Madrid Marathon and

raised £1,155.

• Frances Williams sent in £200 on behalf of The Makin

and Kingsley-Williams families.

In Memory of

Andy Shaw

Paul Shaw sent in £1,615 raised at an annual charity cricket match at Risley Cricket Club.

In Memory of

Graham and Aaron Sayer

Mrs A Sayer sent in £614.20, representing donations received in lieu of floral tributes in memory of her husband.

In Memory of

Neil Schuyleman

• “Team Neil 2019”; Catherine Burton,

Helen Davies, Peter Davies, Minas Georgakakos, Alexia Georgakakos, Rose Georgakakos, Erin Georgakakos, Cathy Wye and Rhianna Wye, took part in the CRY Heart of London Bridges Walk 2019 and raised £1,290.

• Catherine, Steve, Kelly and Pete completed The

Thames Path Challenge and raised £665.41.

In Memory of

Mike Scott

Steve Flintoft took part in the London Marathon 2019 and raised £1,900.

In Memory of

Matthew Seymour

• Mhari Geddes raised a further £415

through donations for her birthday in lieu of gifts.

82

In Memory of

Olivia Shaw

• Team “Live for Liv”; Sydney Bevan, Santiago Kamara-Shaw, Zachary KamaraShaw and Isabel Shaw, took part in the CRY Heart of London Bridges Walk 2019 and raised £105.

• Owen Spinner took part in the Spartan Super Race

and raised £765.

In Memory of

William Shepherd

Susan Shepherd sent in £121.50 received in lieu of floral tributes in memory of her husband.

In Memory of

Max Sheppard

John Sheppard sent in £747.26 raised from a gig.

In Memory of

Peggy Sheppard

Steven Sheppard sent in £200, representing donations received in lieu of floral tributes in memory of his mother.

Issue 80 | September to December 2019

Our Fundraisers In Memory of

Paul Sheridan

• Morag Sheridan forwarded a donation

of £100 in support of the ‘Pedal for Paul’ event.

• Morag Sheridan sent in donations totalling £540.60.

In Memory of

Jack Sheriff

Elizabeth Sheriff sent in £110 raised from collection boxes.

In Memory of

Sukhwinder Singh

“Team Sandeep”; Gurjeet Kaur, Harpreet Kaur, Sandesh Kaur, Sarabjit Kaur, Sandeep Kaur, Simran Kaur, Surinder Singh, Gurdit Singh, Heera Singh, Sarvan Singh and Jaspreet Singh, took part in the CRY Heart of London Bridges Walk 2019 and raised £280.

In Memory of

Aashi Sinha

Mina Goyal organised a Charity Heart Ball and raised a further £628.56.

In Memory of In Memory of

Evan Shonfield

• Heather Costas and Laura Everhurst took part in the CRY Heart of London Bridges Walk 2019 and raised £228.

Nick Sketchley

Marie Barros, Jenna Dobson, Ben Dobson, Jack Dobson, Sophia Dobson and Jo Sketchley took part in the CRY Heart of London Bridges Walk 2019 and raised £560.

In Memory of

• Peter, Sharon and Freda donated £100.

Benjamin Michael Smith

• Caroline Smith sent in £885 raised from refreshments and collections at her recent screening event.

In Memory of

Josh Shotton

Thomas Nunn completed the Vietnam to Cambodia Cycle and raised £390.

• Solent Seahawks American FC raised £323 by selling an end of season magazine.

• Laura Self sent in £150.

In Memory of

Madeline Siddall

• Kevin Walsh donated £100.

• The students of Eckington School

raised a further £856.38.

In Memory of

Robert Daniel Smith

• Anne Siddall took part in the Great North

Run 2019 and raised £2,474.17.

In Memory of

Jamie Simpson

Nicholas Oliver took part in the Hadrian’s Wall Coast to Coast Trek and raised £335.

www.c-r-y.org.uk

day.

• Linda Smith sent in donations totalling £752, including: £160 from Hetton Hawks Cycling Club; £200 from David Barber; £158.90 from Olive Stone Care; £100 from Langley Park WMC; and £133.10 from a fun

• Julie, Paul and family raised £100.09.

83

Our Fundraisers In Memory of

Timmy Spooner

Alice Spooner took part in the Great North Run 2019 and raised £493.

In Memory of

Rupert Spurling

John Peberdy donated £100 in memory of Andrew Spurling.

In Memory of

Sam Standerwick

• Adrian and Debra sent in £4,325.93.

• Adrian, Kayley and Dan completed the Snowdon Walk and raised £1,118.

In Memory of

Philip Standing

• Daniel Keating sent in £3,650 in

respect of UWMFC Old Boy’s Football Games 2015 - 2019.

• The Mountbatten School sent in £234.99 raised from a cake sale and in lieu of sending Christmas cards.

• Sue Fisher sent in £6,224.30 raised through

fundraising at Mountbatten School:

“The Mountbatten students have started fundraising again, this time for a CRY screening in 2021. They attended a local charity fair on Saturday, raising £120 towards the 4th Phil Standing Memorial CRY Screening clinic. They ran two stalls, one promoting CRY and one fundraising by selling necklaces and bracelets, etc, which had been donated. The other stall was about raising awareness of CRY.” Sue Standing.

84

“Well, what a day. Stunning scenery, hills, lakes, rivers and woods with beautiful sunshine. 40 staff from Mountbatten School took part in the 10k Wolf Run at Ashdown forest. They have been amazing, raising £4,000 over the last two years for the Phil Standing Memorial Screening Clinic.

Now the last push of events before 13 February 2019.”

Sue Standing.

In Memory of

Ben Steele

Rosie Steele took part in Vitality London 10,000 and raised £592.54: “I set off to the start line with anticipation, excitement and apprehension as to whether my training would be enough.

Despite my worries the run went well, the sun was out and the atmosphere was electric. The adrenaline of running

Issue 80 | September to December 2019

Our Fundraisers and knowing you’re doing it for such a good cause really does make you forget the physical endurance.

“The Vitality 10k has real sentimental meaning for me – it was the first race I watched live and I still vividly remember cheering my big brother across the finish line.

He really is and always will be my inspiration.

“This year his two wonderful daughters were there to cheer me on and I hope that they too will be able to find some comfort in knowing that we are doing our bit to honour their daddy and also help other families just like ours. Six years on I still miss him every day, but knowing that by running in his footsteps I can help to support so many others makes the pain a little more bearable. I’ve raised over £500 this year and still counting! Thank you!”

Dylan Sykes, Amber Sykes and Emma Sykes, took part in the CRY Heart of London Bridges Walk 2019 and raised £695.

In Memory of

Michael Tavares

Jeremy Newell sent in £100.

In Memory of

Claire Taylor

• Anne Williams took part in the Run LDN Half

Marathon and raised £260.

In Memory of

• Caroline Dyson sent in £1,000 raised at a music

• Angela Stephens donated £100.

“These funds were raised with the help of my friends Patrick and Nicola Molloy, who hosted a music festival in their garden in Abbots Ripton, Cambridgeshire on the 1st September. Thanks should go to them and all the bands and musicians who generously gave their time and talents to create a fantastic event.

Guy Stephens

• Guy’s nan and grandad, Emily, Stephen and Rosie

Sharp, and Helena Gannon donated £100.

• Angela Stephens sent in £137.28, representing

donations received in lieu of floral tributes in memory of her son.

festival:

“Please acknowledge the donation in your next magazine, and mention that it’s in memory of my beautiful niece, Claire Taylor, who died in August 2016.” Caroline Dyson.

In Memory of

Paul Stevens

Matthew Rayner took part in a charity beard shave in 2014 and raised £100.

In Memory of

Rose Stubberfield

• Tonbridge Angels Football Club sent in £290.

• Dave Netherstreet sent in a further donation of £210.

In Memory of

Paul Sykes

“Team Sykes”; Patricia Berry, Susan Dillon, David Dillon, Anna Dillon-Patel, Isabel Dillon-Patel, Peter Sykes, Clare Sykes, Thomas Sykes, Owen Sykes, Holly Sykes,

www.c-r-y.org.uk

In Memory of

Ross Taylor

Amy Ackland, Laura Barnard, Kayleigh Carman, Richie Carman, Joel Crehan, Jacob Crehan, Scott Holloway, Patricia Knox, Edward Lancaster, James Lancaster, Ruthi Lancaster, Lauren Maddison, Mark Maddison, Mel Maddison, Elizabeth Miller, David Redfearn, Marian Redfearn, Claire Taylor, Erin Taylor, Scott Taylor, Francesca Waller, Charlotte Worsley, Esme Worsley and Nick Worsley took part in the CRY Heart of London Bridges Walk 2019 and raised a total of £3,600.

In Memory of

Dale Tennent-Butler

Angela Hale sent in £289.20 raised at a recent screening event.

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Our Fundraisers In Memory of

In Memory of

• Malcolm Terry sent in £390.

• Chris Davis donated £300.

• Malcolm Terry sent in £375, representing donations

• Rachel Hardman donated £250.

Ryan Terry

received in lieu of floral tributes in memory of Ryan’s aunt, Janet Powell.

Charlotte Thompson

• Suzanne Ansell donated £100.

• Elizabeth Payne-Johnson donated £100.

In Memory of

Jack Thomas

• June Thomas forwarded £780 from

Biffa, Ystrad Mynach.

• Susan and Bethany took part in the Cardiff Half Marathon and raised £246.50.

• Sean O’Donnell sent in £130 on behalf of the Monday

• Andrew Day donated £100.

• Fiona Stevens donated £100.

• David Cox donated £100.

• Daniel Thompson sent in £496.50, representing

donations received in lieu of floral tributes in memory of his wife.

and Friday Football boys in memory of Allan Elliott.

• Donna Elliott sent in £850, representing donations

received in lieu of floral tributes in memory of her husband, Allan Elliott.

In Memory of

Joseph Henry Thompson

Michael Thompson sent in £253 raised in lieu of floral tributes in memory of his father, Joseph Henry Thompson.

In Memory of

Nicholas Thomas

• Lizbeth Womwell and her husband

climbed Snowdon and sent in £264.

• Lizbeth and John climbed Mount

Snowdon and sent in £700.50.

• Jenny Thomas raised a further £150 through her

Virgin Money Giving page.

In Memory of

In Memory of

Scott Thurlow

“Team Thurlow”; Lindsey Allan, Phil Bonser, Lyndsey Brown, Fiona Fargher, Jayne Ingram, Georgina Marshall, Rob Micallef, Sarah Platts, Michelle Rushen, Nicholas Simpson, Alastair Simpson, Chris Thurlow, Cathryn Thurlow, Carmen Thurlow, Emma Thurlow, Joe Thurlow, Judith Thurlow, Karl Thurlow, Marc Thurlow, Mia Thurlow, Natalia Thurlow, Sam, Vanessa Thurlow and Wendy Thurlow, took part in the CRY Heart of London Bridges Walk 2019 and raised £165.

Richard Thomas

“Team Gammy”; Jane Jones and Martin Jones, took part in the CRY Heart of London Bridges Walk 2019 and raised £570.

In Memory of

In Memory of

“The event was held on Saturday 7th September in my garden. The outdoor cinema was provided by a good friend who runs a business called Nostalgic Film Club – Lyndsey donated the outdoor cinema so that the proceeds could go to CRY.

Sarah Thomas

Anna Barton took part in a charity netball day and raised a further £300.

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Scott and Mike Thurlow

Cathy Thurlow held an outdoor cinema event and raised £425:

Issue 80 | September to December 2019

Our Fundraisers In Memory of

Ashley Trigg

• Leighanne Beadle sent in £226 raised by the Infinity

Twirlers at the Southend Carnival.

• Mick West and Sandra Morley sent in £800 from

Dacorum Majorettes.

• Team “For Ashley”; Imogen Arran, James Arran,

“We had about 35 adults and children who thoroughly enjoyed the film ‘Paddington’. We provided a BBQ serving hot dogs and offered sweets, popcorn and drinks.

Although it was a very chilly night, the event was a huge hit and we raised a fantastic £425.

Three children in our road sold fruit from their gardens and their donation was a whopping £20 – thank you Esther, Izzy and Joey.”

Joanne Bhadesia, Tia Bhadesia, Milli Bhadesia, Lisa Bliss, Megan Bliss, Rachael Bloomfield, Jessica Cooper, Paul Cooper, Amélie Cooper, Eloise Cooper, Keri Dawes, Kerry Francis, Chris Francis, Louise Gray, Lauren Hall, Daniel Hind, Charlotte Hind, Trevor Hind, Wendy Hind, Lisa Honney, Megan Honney, Jessica Knight, Kerry Lawrence, Sophie Mann, Megan Saunders, Lisa-Jane Taylor, Peter Taylor, Megan Trigg, Karen Trigg, Kevin Trigg, Hayley Perham, Angela Preston, Dean Preston, Isabelle Preston, Graham Rees, Megan Watson and Michael Waleed-yousif, took part in the CRY Heart of London Bridges Walk 2019 and raised £1,710.

In Memory of

Stuart Truscott

Simon Richardson took part in the London Marathon 2019 and raised £2,687.

In Memory of

Ryan Tilley

• David Tilley sent in donations totalling

£274.50 raised at his recent screening event.

• Alice and Hannah Riseley took part in ‘Race to the Stones’ and raised £662.50.

In Memory of

Alex Townsend

Alex Joannou took part in RideLondon-Surrey 100 and raised £1,160.

In Memory of

Frederick Nelson Townsend

Mrs T Gladding sent in £619, representing donations received in lieu of floral tributes in memory of her father.

www.c-r-y.org.uk

In Memory of

Marcus Tsang

Tina Thompson completed a skydive and sent £1,020.04.

In Memory of

Fiona Tucker

“Team Mummy Fiona”; Sarah Bland, Abraham Borges, Karen Hall, Sarah Keenak, Ron Paul, Monica Paul, Azurra Paul, Janice Robinson, Teresa Silveira, Mia Seymour, Steven Tucker, Robbie Tucker and Cassius Tucker-Borges, took part in the CRY Heart of London Bridges Walk 2019 and raised £1,211.

In Memory of

Isabelle Tudisca

• Leo and Della Tudisca sent in a total of £3,148.50.

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Our Fundraisers • Lloyds Bank sent in matched funds totalling £4,000

in respect of funds raised by Mel Miller, Emily Read, Dominika Szewerniak, Fatima Dadabhai, Laura Ricott, Rommel Millington, Jason Aquino and Kieron Anker.

• Stuart Sheperd and Colebrook Royals Junior Football

Club took part in the Roding Valley Park Run and raised £1,535.

• Bret Duncan took part in the Yorkshire Marathon and

raised £404.10.

In Memory of

Danielle Valentine

Ellen Crowley completed the Great Manchester Run and raised £391.

• Paul Durant took part in the Barcelona Marathon and

raised £410.

In Memory of

In Memory of

Vincenzo Vetere

Matthew Sears-Black took part in the Brighton Marathon 2019 and raised £500.

Alex Wardle

Stephen Wardle sent in £300.

In Memory of

In Memory of

Helen Watson

Garth Walker

Kathryn Walker sent in £960 raised at The Victoria Sports and Social Club: “On Sunday 5th October we held our annual Garth Walker Memorial Competition in memory of my husband, who sadly died three years ago after suffering a cardiac arrest.

After his death, myself and our children, Lisa and Nick, chose CRY as our adopted family charity and have been raising money since then. This event has become very popular with family, friends and local residents, who come along to The Victoria Sports and Social Club in Holmes Chapel to take part or just to watch. We have great support from local businesses, who generously donate food for the BBQ, prizes for the raffle, and bake wonderful cakes which we sell on the day. Garth would be so proud of the efforts people go to each year to remember him and to support us a family in our effort to raise as much as we can for such a worthwhile charity. Keep up the good work!”

In Memory of

Neil Ward

• Elaine Ward sent in £2,299.80,

including: £250 from Ashover WI; £750 from Coal Ashton Concert organised by

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Derri Jones and Pauline Gregory; Jiu Jitsu Event at Dronfield Sports Centre; £100 from WI Autumn Federation Meeting in Derby; £200 from Dronfield Town Mayor’s Charity; £479.80 from Church Wine Rotary (Riviera Travel Commission); £370 from Dronfield Morning Townswomen Guild; and £150 from Steel City Athletics.

David Freeborough took part in the Brighton Marathon 2019 and raised £2,030.84.

In Memory of

Keith Webber

Caroline Cooper sent in £125 raised by her line dance students.

In Memory of

Lily Webster

• Jenni Baxter completed a skydive and raised £255.

• Iona Davis completed the Land’s End to John O’Groats Cycle and raised £2,407.25.

• Melanie Webster raised £172 from a collection pot.

In Memory of

Ollie Wellings

• Rob Williams took part in the Liverpool Half Marathon

and raised £349.

• Keri Stanistreet and Team Ollie Fest took part in “Ollie

Fest” and raised £4,102.35.

Issue 80 | September to December 2019

Our Fundraisers In Memory of

Darren Wells

Team “Dazzlers”; Annette Quinn, Gordon Mottram, Megan Quinn, Karl Sylvester and Zachary Quinn, took part in the CRY Heart of London Bridges Walk and raised £1,622.

“Ably supported poolside by friends and family, we managed to raise over £4,500 for CRY, The MIX (supporting Mental Health), and First Touch (supporting sick and prematurely born babies at St George’s, Tooting).

In Memory of

Kathryn Wheeler

Drew May completed a skydive and raised £420.

In Memory of

David White

• Harry and Lisa took part in It’s a Knockout and raised £355.

• Lisa Steel forwarded a donation of £345.36 from Tony and Shiobhain.

In Memory of

David White and Damien Jewell

David Jewell sent in £1,479 raised from the second CRY North Tyneside Seaside Walk.

In Memory of

Emlyn Arthur Wibberley

Ben Brook, Team PCC and Team A1 completed the 24 Hour Swimmers event and raised £1,667.90: “On the Easter weekend three members of Putney Cricket Club – Ben Brook, Paul McCann and Mark Wibberley – and a separate team of three friends took part in the 24-hour swimming event ‘2swim4life’ at the Guildford Lido. The format: swimming a mile distance every hour on the half-hour in relay (each person completing their allotted 8 miles spread over 24 hours), the event commenced at 9.30am on Saturday, ending an exhausting 24 hours later on a bright Easter Sunday morning. Having set up a tent on the Friday evening, the atmosphere and camaraderie around the pool was fantastic. The weather Gods were very kind to us too.

Beautiful, warm, 24 deg. C sunny weather during the day gave way to very cold, clear night skies lit by full moon.

Night temperatures were difficult to deal with (pulling on a wet costume in darkness in 6 deg. C is not much fun, and getting into the 19 deg. C water was a relief at 4am!).

www.c-r-y.org.uk

“A huge thanks to the guys above and the other team members, Maxine Bennett, Hamish Clarke and the unflappable Darren Lapham, for their support in raising the money. And not forgetting the poolside team of Megan Wibberley and Mark Smith for all their efforts in making sure the swimmers were ready on the half-hour, fed and watered throughout the day and night.” Mark Wibberley.

In Memory of

Stevie Wiggins

Sheila Wiggins sent in £867.49 raised by the Heartfelt Group as follows: £417 from a charity shop; £40 from a cake bake (Madison Steel and Katie Mann); £97.60 from a table top sale; £161.36 from a Tesco collection (awareness day); £23.34 from a garden party (Jean Smith); £33.19 from Tinkerbells Nursery; and £95 Preston Pulse (tombola).

In Memory of

Eileen Wigham

Lauren and Robyn took part in the Isle of Wight Challenge and raised £6,192.01.

89

Our Fundraisers In Memory of

Katherine Wilcock

Emma Mills took part in dry January and raised £305.

In Memory of

Ian Williams

Alex Hay completed a Channel swim and raised £8,250.

In Memory of

Jo Wilson

Team “Walk for Joanna Wilson”; Sandie Burke, Angela Kilbride, Nicola Ledlie and Karen Russell, took part in the CRY Heart of London Bridges Walk 2019 and raised £1,777.12.

In Memory of

Lee Wilson

Casey Knight took part in the London Marathon 2019 and raised £2,789.09.

In Memory of

Melanie Jayne Woods

Shannon Salisbury organised a sponsored walk and raised £115.90 in memory of her mother.

In Memory of

Olivia Woodward

Charlie Gilbert took part in the Prudential RideLondon-Surrey 100 and raised £979.

In Memory of

Seth Woolley

“Team Seth”; Charlotte Harrison-Wear, Mia Carey-Parsons, Liz Woolley, Clive Woolley and Zac Woolley, took part in the CRY Heart of London Bridges Walk 2019 and raised £405.

90

In Memory of

Robert Worboys

Bedford School took part in a charity run and raised £1,496.21.

In Memory of

Louise Worth

Ami and Ben completed an Everest Base Camp Trek and raised £1,030: “We trekked to Kala Patthar on the 3rd, reaching 5,550m, and Everest Base Camp on the 4th, reaching 5,365m. There was a wider group of 16 people in total and we all reached base camp successfully.

An amazing trip! The best view of Everest is from Kala Patthar and it’s the mountain in the background with the snow being blown off it. As an aside to our fundraising, two members of our group broke the Guinness world record for the highest DJ set on land. This was done on Kala Patthar (previous record was for Paul Oakenfold at base camp) so we were there to witness (and dance!) to the set at that altitude.”

In Memory of

Michael Yendall

• Sue Kearney raised £290 from taking part in the Whitby Saltburn Challenge.

• Tracy and David sent in £550 raised from a memorial walk.

• Lee Rinnison sent in £100 raised from dress down

Fridays held at LJJ Ltd.

In Memory of

Michael Yorston

• Janet Yorston sent in £100 raised at her birthday fundraiser.

• Rhianne Stewart forwarded £100 on behalf of Charles River Analytical Chemistry.

Issue 80 | September to December 2019

General Fundraising • AKS Lytham Independent School Year 10 technology

class members hosted a design competition and summer fair tool sale and raised £139.50.

• Kayleigh Andrews

held a raffle and tombola at RAF Digby Day and raised £1,398.

“Kayleigh Andrews ran a stall at the RAF Digby Day Fundraiser in support of her colleague, Ryan Morley, who has a heart condition.

“Kayleigh reports a busy, successful day and managed to raise £1,398 in total!”

• Annisa and Ben took part in the Hadrian’s Wall Trek

and raised £415.44.

• Andrew Ball and Team took part in The Urban 8 Week

Challenge and raised £810.

• Barbara and Cliff took part in the Hawaii Half

Marathon and raised £2,006.16.

• Melanie Barber took part in the Manchester Half

donations and £1,475 matched

by Barratt Developments PLC. On Friday 29th March, team GSC Spaghetti Legs took part in walking 22.5 miles as part of the Leicestershire Round Charity Walk raising money for CRY. Team members: Steven Nightingale, Rob Chilton, Stuart Mason, Helen Nyul, Michelle Clarkson-Smith, Olly Clarke and Ricky Smith (all from Barratt, Group Design & Technical).

“The walk began at 9:30am from Belton in Rutland with lunch at 1:30pm in East Langton and we finished at 6pm in Bruntingthorpe. We were very fortunate with the weather staying dry, bright and warm all day.

“A mention to Nigel Longstaff who played his part as our support vehicle driver during the day, and for Sean Wilson for dropping off and then collecting weary walkers at the end of the day. Also to Chloe Watson from CRY for providing t-shirts.

• Barclays sent in a matched giving donation of £2,880.

“The walk was testing but all very worthwhile for a great charity. In total, over 51,000 steps were necessary to complete the challenge, which resulted in numerous blisters, aches and pains.” Steven Nightingale.

• Matthew Barker took part in a charity football match

• Hollie Bell took part in various 5k fundraising events

• Joe Barlow, Caroline and Jane took part in a 25-mile

• Mr and Mrs Bell sent in £225 raised through their

Marathon and raised £385.62.

and raised £1,166.53.

walk in Derbyshire and raised £959.

• Team Barratt GSC Bardon took part in the

Leicestershire Round 2019 and raised £2,950:

“A magnificent total of £2,950 was raised – £1,475 via

www.c-r-y.org.uk

throughout 2018 and 2019 and raised £935.

60th wedding anniversary celebrations, in memory of their son.

• Phil Bennett sent in £135 raised at his ‘birthday

bash’.

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General Fundraising • Bentworth Village Fete Committee held a village

• Christopher Cronin completed the Leeds Half

• Calum Binnie took part in the West Highland Wander

• Nigel Cupac took part in a sponsored cycle ride in

• Callum Bloor organised a charity family fun day and

• Daily Mail and General Trust plc sent in £2,500 at the

• Lynn Brannan sent in £267.40.

• CRY Representative Benita Davies collected £1,250

summer fete and raised £250. and raised £968. raised £500.

• Nick Brewster took part in the Prudential RideLondon-

Surrey 100 and raised £615.31.

• Lucy Bulkeley sent in £321.50 raised from the day of

cycling races named ‘Crit for CRY’.

• Roger Bullivant Limited held a charity day and raised

£1,675.21.

• Caitlin, Ian, Theoklis and Sebastian completed the

Edinburgh Marathon Relay and raised £275.

Marathon and raised £322.50.

Sweden and raised £270.

request of Zoe O’Neil at Searchflow.

on behalf of the Hillside Ladies presentation night, including a donation of £150 from Edna Griffin.

• Darsh and Jemima Dhillon donated £500.

• David Doran took part in the Prudential RideLondon-

Surrey 100 and raised £280.

• Dover Town Council sent in £500 raised by the

Channel Swimming Association.

• Drive Vauxhall (Bristol) donated £100.

• Aileen Campbell sent in £410.036 raised from a

• Peter Earle sent in £500 raised at the Blue Force

• Mrs E Chan donated £1,000.

• India Ede at Spirit FM forwarded a donation of £200

village coffee morning.

• Charity Car sent in donations totalling £422.

• Phil Cheveley forwarded a donation of £500 raised

from Travers Smith following his Kilimanjaro climb.

• Deborah Clark sent in £100 raised from a tack sale.

• John Coker donated £100 in memory of Harry.

• Jean Coote sent in £100 in appreciation of her

grandson’s screening.

• Lieutenant Colonel (Retired) Mick Cotton MBE

nominated CRY to receive a donation of £250 raised from cricket items signed by CRY Patron Joe Root.

• Abbie Cowie, Gareth Cowie, Freddy Cowie and Edie

Cowie took part in the CRY Heart of London Bridges Walk 2019 and raised £450.

• Cranleigh Preparatory School pupils (year

7 and 8) voted to support CRY during their academic year. Year 8 pupil Monty raised £377 by selling chilli plants and his friend, Sirus, raised a further £25 by attending a car boot sale where he sold more chilli plants. £150.73 was raised through a Mufti Day where the whole school took part.

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Suffolk Working Day.

on behalf of Frank Clark. Frank was the Spirit FM Sports winner for 2019 for his talent in the world of Tumbling and has chosen to donate his winnings to CRY.

• Team “Edwards”; Pauline Edwards and Abi Edwards,

took part in the CRY Heart of London Bridges Walk 2019 and raised £140.

• Peter Edwards sent in a donation of £600 via The

Mitre Charitable Trust.

• Gill Ellis donated £200 in appreciation of her son

being screening by CRY.

• David Ennett donated £1,200.

• Ernst & Young LLP held a dress down day and raised

£296.98.

• Ffion Evans took part in Dry January and raised £160.

• Sue Eve donated £219.70 via Payroll Giving.

• Exponent Private Equity raised £12,051.50.

• Mahammad Fazeli donated £100.

• Sandy and Elizabeth Ferguson donated £100.

Issue 80 | September to December 2019

General Fundraising • Angie Firth and Neville Wrigglesworth sent £250

donated in support of their new partnership with the Northern Premier League.

• Parker Fitzerald Ltd took part in the Hackney Half

Marathon and raised £1,118.10.

• James Forrest sent in £500 from the Blue Force

Tractor Club.

• Catherine Foster completed the Clipper Round the

World Yacht Race and raised £1,511.

• Jo Freeman sent in £337.70 raised by the Nationwide

Building Society at a quiz night.

• Oliver Furneaux took part in the Llanelli Half Marathon

and then we got a group photo afterwards in our T-shirts.

• Robert Garratt raised £250 through a Karate event.

Weather conditions were against us but it was a great weekend to be able to complete the challenge and raise money for worthy charities.”

and raised £1,011.

• Eric Govan raised £110 from a coastal walk.

• The Grammar School at Leeds

held a school collection and raised £420.78.

• Halifax Foundation for Northern Ireland sent in

a matched giving donation of £500 in respect of Danielle McKay’s family fun day.

• Rachel Hardman donated £121.

• Dom Hewson completed a sponsored shave in 2014

and raised £542.17.

• Professor Jenny Higham took part in the London

Marathon 2019 and raised £1,620.

• Chris Hill took part in the Thames Turbo Triathlon and

London Revolution and raised £135.

• Daniel Hill sent in donations totalling £293.84 in

respect of the Matlock National Citizens Service sponsored walk and cycle event.

• Tony Hillier collected a donation of £520.41 from

Milton Keynes Community Cardio-pulmonary Group.

• Gavin Holland at Newable sent in £116.84.

• Emilia Hoyle and her team completed the HTL

National 3 Peak Challenge and raised £357.75:

“We completed our 3 Peaks Challenge! Unfortunately, we were not able to get group pictures on the tops of the mountains due to time and weather but a few of us did

www.c-r-y.org.uk

• Anna Hughes sent in £226.45 from Tonbridge School

raised from collection boxes.

• James, Chloe and Eli completed a Tough Mudder and

raised £669.

• Hayley Jaynes took part in the CRY Heart of London

Bridges Walk 2019 and raised £153.

• Neil Johnstone, Ian and Ben took part in LEJOG 2019

and raised £110.

• Nick Jones took part in the Potters ‘Arf Marathon and

the Manchester Half Marathon and raised £152:

“I completed the two half marathons I took part in. I ran in the Stoke-on-Trent local half marathon on 09/06/19, which is called the Potters ‘Arf Marathon, and I also ran in the Wiggle Manchester Half Marathon on 13/10/19.

93

General Fundraising • Lavina Long at Farrington School

organised a marathon challenge with the Junior School over the summer term and raised £152.

• Team “The Long QT’s”; Jodie Pearson and Kim Homer,

took part in the CRY Heart of London Bridges Walk 2019 and raised £180.

• Rosemary Macartney donated £265 raised from a

collection box.

• Frances Magee sent in £125 in memory of her

daughter, Lynne.

Altogether I’ve managed to raise £152 for CRY. “I wanted to run for CRY because they are a fantastic charity that does unbelievable work to raise awareness of undiagnosed cardiac conditions. I too was diagnosed with a heart condition myself 10 years ago.

• CRY Representative Jeff Markham collected a

donation of £125 on behalf of the Rotary Club of Ripley & Send.

“I was very fortunate that they found this when they did, because in May 2015, when I was 30 years of age, I would go on to have open heart surgery.

“With the help of everyone at the Royal Stoke Hospital who performed the operation, and with the help of the British Heart Foundation, I would make a full recovery.

“I am truly grateful for what they did, and to this day I can honestly say I’ve never felt better. The work that both charities do, CRY and BHF, is truly remarkable.”

• King’s High School Sixth Form Girls raised £188.41

from Christmas fetes, sales and collections.

• Tim Larkman sent in £229.41 raised by the pupils in

Loosley Halls at Wycliffe College.

• Stuart Lees, Sam, Tom, Oli and Ross completed the

Mallorca Half Marathon and raised £475.

• Graham Leyland sent in £300 raised by family and

friends, in lieu of gifts on his 80th birthday.

• Sadie Ling and Lydia Ling took part in the CRY Heart

of London Bridges Walk 2019 and raised £499.

• Team Emery Little held a private dining event and

raised £792.

• Lloyds Bank Foundation donated £1,180.

• Lloyds Bank Foundation donated £5,000.

94

• Amy Mason took part in the Prudential RideLondon-

Surrey 100 and raised £537.

• Paul Mason held a Blue Collar Barbering event and

raised £1,200.

• David Massey sent in £500 from Burdett Coutts lodge

No 1278.

• Team ‘Matter of Form’ took part in a 5k Tough Mudder

and raised £1,210.

• Phillip Matthews donated £100.

• Alice McCann sent in £500 raised from a fundraising

day, football tournament, BBQ, cake sale and a raffle at Ernst & Young LLP in memory of Kay.

• Olivia McNeaney completed the Great Manchester

Run 10k and raised £244.

Issue 80 | September to December 2019

General Fundraising • Peter McNiven donated £100.

• Belinda Metcalfe completed the Yorkshire 3 Peak

Challenge and raised £375.

• Philip Miles took part in a 26.2 Foot Firewalk and

26.2 Mile Marathon and raised £115.

• Ellyw Pickstock sent in £209 from Yagol Pontobert’s

school council’s thanksgiving service and collection.

• The Prebendal School sent in

£374.05 raised from their end of term summer service at Chichester Cathedral.

• Phil Milestook sent in £350 raised by the

• Rachel and Lucy took part in the Newport Marathon

• Michael Miller sent in £250.

• Paul Redfern took part in a sponsored wax 2014 and

Worcestershire Trailblazers.

• Rakesh Mistry donated £275.

• Montgomery Academy raised £288.08.

and raised £525. raised £180.

• Storme Rees sent in £130 in appreciation of a talk

given by Andrew Osborne.

• Rob Moody took part in the London Marathon 2019

• Richmond FC completed the challenge RFC to

• The Mountbatten School took part in

• Chelsea Rist completed a Wing Walk and raised

• Neil, Ian and Ben cycled from Land’s End to John

• Robert and Team Cambridge & Counties Bank took

and raised £2,864.40.

NCS projects and raised £380.81.

O’Groats and raised £4,240.85.

• James North took part in the Vitality London 10,000

2019 and raised £270.

• Old Mutual Plc donated £1,064.50.

• Sophie Padhiar completed the Chester Half Marathon

and raised £590.23.

• Dr and Mrs Parham donated £200.

• Alex Parkhomenko sent in £200 from Apex

Engineering Service Ltd.

• Jason Patrick took part in the Thumb Culture Charity

Gaming Streaming Weekend and raised £939.16.

• Paula, Kull, Siobhan, Donna, Damien and Johnny

completed the Rat Race Dirty Weekend and raised £360.

• Pembroke Farmers’ Club, West Wales donated

£100 in lieu of Hywel Mason’s fee to attend their agricultural with one of his vintage machines.

• Jenny Perry sent in £100.

• Peter completed the Burren Marathon and raised

£150.

• Philip and Jason took part in the South Coast

Challenge and raised £665.

www.c-r-y.org.uk

Brussels and raised £2,730.50. £340.

part in the Remember Charity Walk and raised £1,566.

• Charlie Robinson, Zoe, Mike, Kayleigh and Annabel

took part in TH96 Run 2019 and raised £758.

• Peter and Sue Robinson sent in £200 in lieu of taking

part in a bake sale.

• Berni Ryan took part in the Great North Run 2019

and raised £467.50.

• Santander Foundation sent in a matched fund

donation of £250 relating to Jamie Whitfield’s office dress down day.

• The Scrutator Lodge No. 9379 donated £150.

• Sheffield United NCS donated £1,036.27 raised

through various fundraising activities.

• Louise Sheridan donated £100 in appreciation of her

children being screened.

• Lindsay Siddall took part in a ladies and gents Full

Monty event and raised £2,100.

• Simon Lanton Grammar School for

Boys took part in a sponsored walk and raised £370.67.

• Skipton Building Society sent in a matched fund

donation of £100 following their colleagues’

95

General Fundraising fundraising efforts.

the baby competitions and raised £338.55.

• Delia Smith sent in £438.42 raised during Ark

• Universities Lodge of Staffordshire L9907 donated

• Howard Smith took part in the Great North Run 2019

• Wales & West Utilities sent in £100 raised from their

• Team Smithers Skydiving Superheroes completed a

• Gillian Walker took part in the CRY Heart of London

• Sophie and Johnny donated £215 in lieu of wedding

• Mr Wallder sent in £500 donated by Woodcote Epsom

• Spondon Folk & Acoustic Club sent in £200. CRY was

• Anna Warchol took part in the Royal Parks Half

• Staffordshire Cricket sent in £500 raised at their

• Tilly Watts sent in £100 raised by the members of the

• Damon Statt forwarded a donation of £100 on behalf

• Bob Welch sent in £1,000 raised by customers and

• St Cyrus Solos Running Club completed the Edinburgh

• Ian Wells took part in a 21k swim and raised

• Stevie, Fran and Zoe and the team at Beaverbrooks

• Mr Whyatt sent in £2,567.06 on behalf of the Bicester

Academy’s Charity week. and raised £523.

skydive and raised £1,943. gifts.

nominated to receive the donation by their member Mary. annual presentation night. of Mischief PR.

Half Marathon and raised £1,411.05.

the Jewellers in Meadowhall, Sheffield donated £1,300.

• St Mary’s Hare Park School sent in

£350 raised from a production of “Oliver” by their year 6 pupils.

• Lorna Stones organised breakfast clubs and raised

£3,322.17.

• Streatham Common WI donated £250.

£250.

customer feedback draw.

Bridges Walk 2019 and raised £500.

Lodge (L6293).

Marathon 2019 and raised £1,745 in memory of Gabriele.

River Camel Quilters.

volunteers at the Burslem Bible Shop. £440.30.

Millennium Cycle Club.

• Mark Wiggins sent in £4,000 raised at The Box

Cleaning Golf Day.

• Neville Wiggleworth sent in £200 from the directors

and supporters of Ossett United Football Club.

• Wildern School completed the

Romsey Relay Marathon and raised £440.

• Nicholas Suggit took part in the Prudential

• Hannah Williams took part in the Yeovil Half Marathon

• Technip UK Ltd donated £1,000.

• Judy Willits donated £100 in appreciation of her son’s

RideLondon-Surrey 100 and raised £1,170.

• Templeton Primary School sent in £210 raised from

their Harvest fundraising event.

2019 and raised £105.43. screening

• St Wilfird’s Church, Northenden sent in £324.

• Celia Thomas organised a Vintage and Artisan Dolls

• Josh Woods took part in an All-In-Fitness charity boot

• Una Tod donated £100.

• ZyroFisher donated £900 raised from their annual

House Fair and raised £815.

• TPC Leadership Ltd sent in £7,096.23.

camp and raised £258. fundraising activities.

• The staff at UKPower Networks in Croydon held a

raffle, guess the Rice Krispies in the jar, and guess

96

Issue 80 | September to December 2019

Raising Awareness in the Media Report Between September and December CRY featured in 190 print articles, including 10 national articles and 19 magazine articles. CRY also featured in 162 online articles.

Headlines from September to December in the press...

‘600 “healthy” young people die needlessly each year’ Daily Express As part of a partnership with the Daily Express, this article addressed the incidence of young sudden cardiac death and what CRY is doing to prevent more tragedies.

Published 24 October 2019

‘MP joins call for life-saving heart checks’ Daily Express Mims Davies MP started supporting CRY after hearing of the sudden death of Claire Reed, and backed the Daily Express ‘Young Hearts Matter Too’ campaign.

Published 25 October 2019

‘Supermarket hands £50,000 to three lifesaving charities’ Cornish Guardian This is an example of the press coverage received as a result of the Tesco Bags of Help Centenary Grant, giving CRY funds for screenings around the UK. Published 27 November 2019

Online...

‘The tragic reason behind Coronation Street star’s decision to have a heart screening’ Manchester Evening News, 9 September 2019 Coronation Street actor Colson Smith attended a CRY screening event held in memory of Rory Embling.

Read online at https://bit.ly/2WR0qhr

‘Inspirational Wallsend teenager turns heartbreak into hope after death of two family members’ ChronicleLive, 23 October 2019 Harry Steel received an award at the British Citizen Youth Awards for individuals under 18 who have made a positive difference in their community, as a result of his support for CRY. Read online at https://bit.ly/3dvqqES

‘Devastated boyfriend learns girlfriend died days after planning Rome proposal’ Mirror, 15 November 2019 Drew McLean has been supporting CRY since losing his girlfriend, Charlotte Orwin.

Read online at https://bit.ly/2uBYvkG

For links to online, press, television and radio coverage related to CRY and young sudden cardiac death visit www.c-r-y.org.uk/inthemedia www.c-r-y.org.uk

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Fundraising Events 2020 Please contact the fundraising team on 01737 363222 or email events@c-r-y.org.uk if you are interested in any of the following events. For more information and a full list of events visit www.c-r-y.org.uk/category/upcomingcryevents All participants in mass-participation events who contact the CRY fundraising team (whether they have their own place or a CRY charity place) will receive a welcome pack containing sponsor forms, information, helpful tips and either a T-shirt or vest (depending on the type of event).

Rough Runner

Simplyhealth Great North Run

Rough Runner is an obstacle course like no other; combining distance running (5km, 10km and 15km) with a variety of obstacles along the way, inspired by game shows.

This is the world’s leading half marathon.

The 13.1-mile course runs from Newcastle upon Tyne to South Shields and attracts many world-class athletes.

Parachute Jumps

September 19

Throughout 2020

Assorted dates

Trek Kilimanjaro

Assorted dates, 2020 Kilimanjaro is the highest mountain on the African continent at 5,896m. Its snow-capped summit rises high above the dusty African plains. Spectacular views and beautiful ice formations are the reward for pushing your limits.

CRY Heart of London Bridges Walk June 28

CRY’s flagship event is a 5.5-mile walk through central London, crossing some of the famous bridges and passing iconic landmarks. Join us after for the CRY Family Picnic to connect and remember.

AJ Bell London Triathlon August 8-9

Attracting over 11,000 participants and 30,000 spectators each year, this iconic triathlon has become a must-do event in the sporting calendar. With a variety of distances, routes and wave categories to choose from, our event caters for athletes of all levels.

Prudential RideLondon-Surrey 46 and 100 August 16

The event comprises of a 100-mile or a 46-mile cycle route on closed roads through the capital into countryside.

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September 13

CRY Heart of Durham Walk The 5-mile route (suitable for all) starts and ends at Durham Amateur Rowing Club and passes along the River Wear and through the beautiful city of Durham.

Cardiff Half Marathon October 4

The Cardiff University/Cardiff Half Marathon has grown into one of the most exciting road races in the UK. It is now one of Europe’s largest half marathons and is Wales’ largest mass participation and multi-charity fundraising event.

marathon takes in the capital’s worldfamous landmarks on closed roads, and four of London’s eight Royal Parks.

Big Heart Bike Ride 6-14 November

Join the next Big Heart Bike Ride in South Africa for a 400km cycle along the world-renowned Garden Route. You will kick off this cycle challenge in the wonderful lagoon town of Brenton-onSea, alongside rivers, farmland, rustic villages and even a game reserve.

Sahara Trek

November 7-12 Trekking the Sahara Desert will provide you with an unbelievable experience.

From the vast emptiness of the desert to the warm friendship of the itinerant berbers this natural wilderness will both inspire and challenge you on what is undoubtedly the trip of a lifetime.

Virgin Money London Marathon CRY Raising Awareness Week October 4 (Limited places available)

November 14-22

The London Marathon is the most iconic marathon in the world, starting in Blackheath, passing many iconic London landmarks before finishing on The Mall.

Get your family, friends, colleagues and children involved in various events to raise awareness of CRY!

The Road to Mandalay (Cycle Burma)

November 20

October 10-18

Taking on 360km, we will experience some of the highlights of Burma, including the archaeological site of Bagan with over 2,000 temples! We also explore the last royal capital, Mandalay, where we can visit the ancient monastery, the palace and more.

Royal Parks Half Marathon October 11

This stunning central London half

CRY Great Cake Bake This is a fun and simple way to get involved in Raising Awareness Week.

Get your family, friends, colleagues and children involved in baking, eating and raising money for CRY.

Santa Run December 8

With a 5k or 10k course, this is London’s most popular Santa Run. Bring a flash of red to the streets of London with thousands of runners dressed as Santa Claus to spread festive fun.

Issue 80 | September to December 2019

CRY Update 80 September to December 2019 Our Fundraisers By fundraising for CRY you will be helping to: • subsidise CRY’s national cardiac screening programme • fund CRY’s bereavement support programme to provide counselling and support to affected families • support research into young sudden cardiac death (YSCD) • develop the myheart Network to support young people living with cardiac conditions • provide all CRY literature and information free of charge • develop the CRY Centre for Cardiac Pathology (CRY CCP), and the CRY Centre for Inherited Cardiovascular Conditions and Sports Cardiology

The involvement of our fundraisers has been crucial to helping CRY raise awareness about YSCD. Whether you are carrying out your own activity or taking part in an organised event such as the London Marathon or the Great North Run, remember that CRY will always support your effort with posters, sponsor forms and other resources.

If you would like to join our fundraisers, CRY also offers a range of fundraising challenge events, including parachute jumps, white water rafting and a selection of trekking and cycling events.

For further information please call the CRY office on 01737 363222 or visit www.c-r-y.org.uk/donations All your help is greatly appreciated.

Visit www.c-r-y.org.uk/charityfundraising-challenge-events for more information or contact the CRY office for a fundraising ideas pack.

Our Patrons

Our Mailings

The urgency of CRY’s mission and the quality of our work has compelled many high-profile personalities to give their time to become CRY Patrons.

For more information visit www.c-r-y.org.uk/about-us/patrons

Sir Ian Botham OBE

Honorary President of CRY “It is not just athletes who are at risk of these heart disorders – it can happen to anyone. The problem has been swept under the carpet for too long and there have been too many excuses. I am a parent and a grandparent and I want to know that my kids and grandkids will be screened as a matter of course. It’s the only way we can prevent these sudden deaths occurring.”

Current Patrons of CRY: Rob Andrew MBE • John Barrowman MBE • Jeremy Bates • Ben Brown • Clive Clarke • Jack Clifford • James Cracknell OBE • Nick Easter • Jonny Evans • Baroness Ilora Finlay • Simon Halliday • Kathryn Harries • Michael Hoey • John Inverdale • Tom James MBE • Pat Jennings OBE KSG • Rob Key • Gary Longwell • Pixie Lott • Emily Maitlis • Graeme McDowell MBE • Lee Mears • Bill Neely • Lawrence Okoye • Phil Packer MBE • Sir Steve Redgrave CBE • Vincent Regan • Joe Root • Andy Scott • Roger Taylor MBE • Professor Gaetano Thiene • Gregor Townsend MBE • Andrew Triggs-Hodge MBE • Andrew Trimble • David Walliams • Alison Waters • Matt Wells • Sir Clive Woodward OBE

www.c-r-y.org.uk

There are many different ways you can donate to CRY. Online and cheque donations are the most popular methods, and we also accept credit/debit card donations over the phone.

1. CRY Update magazine Postal mailing of CRY’s regular (three issues a year) news and events magazine. Includes reports from the CRY CEO and Founder; supporters’ fundraising; articles about screening, myheart, research, pathology, raising awareness initiatives, massparticipation fundraising events; and much more.

2. CRY enewsletter Monthly email newsletter; 3 emails per year with links to the online version of the Update magazine; plus occasional emails about major CRY events and initiatives.

If you would like to subscribe to – or unsubscribe from – either of these mailing lists, please let us know: • Complete the online form; www.c-r-y.org.uk/subscribe • Call the CRY office; 01737 363222 • Email the CRY office; cry@c-r-y.org.uk

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Our Mission When Cardiac Risk in the Young (CRY) was founded in 1995 it was the first organisation to draw attention to the range of conditions that can cause young sudden cardiac death (YSCD).

Every week in the UK at least 12 apparently fit and healthy young people die of undiagnosed heart conditions.

These conditions include hypertrophic cardiomyopathy (HCM) and other diseases of the heart muscle, as well as electrical heart disorders which can lead to sudden arrhythmic death syndrome (SADS).

CRY aims to reduce the frequency of YSCD through raising awareness amongst the general public and medical community, providing expert cardiac pathology, improving early diagnosis through screening, supporting young people diagnosed and funding research.

1 in 300 young people CRY tests will have a potentially lifethreatening heart condition.

CRY believes cardiac screening should be available to all young people aged between 14 and 35.

Registered Charity No. 1050845

CRY also works to guide and support families and close friends affected by YSCD. We provide information to explain what the coroner does, bereavement support, help with NHS referrals and advice on the procedures that usually follow a YSCD. In 80% of cases of young sudden cardiac death there are no prior

We are very proud that over 80p in every £1 we spend goes into supporting CRY’s key aims.

Without the fantastic support we receive this wouldn’t be possible.

symptoms of a heart defect.

CRY publishes a range of medical information written by leading cardiologists that is easy to understand and made available to the public free of charge.

For detailed information about cardiac conditions and CRY’s range of literature visit www.c-r-y.org.uk/ medical-information

Fundraising Awareness 15.2% Governance 14.3% 2.2% Support 8.2%

Screening 37%

Research 23.1%

CRY is grateful for grants or donations from trusts and foundations.

We would like to thank the following for the generous support they have given us:

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A & R Woolf Charitable Trust • Aubrey Orchard-Lisle Charitable Trust • The Brian Shaw Memorial Trust • Borrows Charitable Trust • The Cantiacorum Foundation • Carval Foundation • Charles Littlewood Hill Trust • The Charles Wolfson Charitable Trust • Childwick Trust • CMS Cameron McKenna Foundation • Cosaraf Foundation • Doris Field Charitable Trust • The Edith Murphy Foundation • G C Gibson Charitable Trust • G M Morrison Charitable Trust • Gawthorn Cardiac Trust • Hasluck Charitable Trust • James Tudor Foundation • The Lady Forester Trust • Leathersellers’ Company Charitable Fund • The Mabel Harper Charitable Trust • The May Gibson Charitable Trust • The Rachel & David Barnett Charitable Trust • The Samuel Storey Family Charitable Trust • The Schroder Charity Trust • Sir John Sumner’s Trust • Sir Robert Gooch Charitable Trust • St Christopher Health Fund • The Stanley Grundy Foundation • Tudor Foundation Inc • Vernon N Ely Charitable Trust

Tel: 01737 363222 Fax: 01737 363444 Email: cry@c-r-y.org.uk

Visit our websites: www.c-r-y.org.uk www.sads.org.uk

CardiacRiskintheYoung CardiacRiskintheYoung @CRY_UK