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News and Events | Raising Awareness | Our Fundraisers

Update 79 | May to August 2019

In this

Newsletter CRY’s Family Research Day

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Prudential RideLondon-Surrey 2019

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CRY’s drop-in event at Parliament

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Tel: 01737 363222 Fax: 01737 363444 Email: cry@c-r-y.org.uk

Visit our websites: www.c-r-y.org.uk www.sads.org.uk

CardiacRiskintheYoung CardiacRiskintheYoung @CRY_UK

To r of ece th ive ww e C th w. RY e on su c-r- Upd line bs y.o at v cr rg e, ers ib .u vis io e k/ it n :

CRY Heart of London Bridges Walk 2019 | 18


CRY Update 79 May to August 2019

Inside Update 79

Editor Dr Steven Cox

Chief Executive

Deputy Editor Newsletter Editor

Tom West

As Deputy Editor of the CRY Update it is my responsibility to put together this newsletter, and ambition that you find all the CRY news, events and fundraising in these pages to be of interest. I always endeavour to ensure the information printed in this newsletter is accurate, but please do not hesitate to get in touch with me if you notice something amiss. CRY receives an incredible amount of support and I know occasionally an error will slip through, however any fundraising corrections will be clearly demarcated at the beginning of the subsequent issue’s fundraising section. I would appreciate hearing from you at tom@c-r-y.org.uk or on 01737 363222 if you have any feedback or comments regarding previous issues. Thank you for your help.

Meet Our Representative News from the Chief Executive CRY Online CRY Centre for Cardiac Pathology (CRY CCP) Report CRY Screening Report Alison’s Column CRY’s Family Research Day CRY Heart of London Bridges Walk 2019 Prudential RideLondon-Surrey 2019 CRY’s drop-in event at Parliament Our Fundraisers Raising Awareness in the Media Report Fundraising Events 2020

Contributors Alison Cox MBE

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Founder

Professor Mary Sheppard Consultant Cardiac Pathologist

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Head Office:

Unit 1140B The Axis Centre Cleeve Road Leatherhead KT22 7RD No part of this publication may be reproduced, stored in a retrieval system or transmitted in any form or by any means; electronic, mechanical, photocopying, recording or otherwise, without prior permission of the Editor. The Editor welcomes letters but reserves the right to edit when necessary and to withhold publication. Any opinion or statement by the author of any article or letter published does not necessarily represent the opinion of Cardiac Risk in the Young (CRY). Articles pertaining to health-related topics are for information only. Readers should obtain advice from their own practitioner before attempting to diagnose or administer any medication. Mention of any products or procedure should not be considered an endorsement for said product or procedure.

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For more details regarding the events shown on the cover, please turn to the corresponding page references below. Images are listed clockwise from top left: 1. CRY staff and volunteers at the 2019 Prudential RideLondon-Surrey 46 and 100. Page 20. 2. CRY supporters participating in a Hell Run event in memory of Paul Stephens. Page 67.

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CRY Founder Alison Cox and Kevan Jones MP at CRY’s drop-in event at Parliament. Page 23.

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CRY’s Family Research Day. Page 16.

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CRY Patron Kathryn Harries at the CRY Heart of London Bridges Walk 2019. Page 18.

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CRY supporters participating in a bike ride in memory of Owen Morris. Page 57.

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The CRY Heart of London Bridges Walk 2019. Page 18.

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CRY Patron Simon Halliday at a 6 Nations rugby lunch event in support of CRY. Page 80.

Entries appear in the “Our Fundraisers” section according to when CRY sends official receipt of monies raised.

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CRY supporters taking part in a sponsored walk in memory of Richard Merriman. Page 56.

If you can supply a writeup or photos for any fundraising activities you have taken part in, please email tom@c-r-y.org.uk.

12. A CRY cyclist at the 2019 Prudential RideLondon-Surrey. Page 20.

Submission guidelines: We include activities in the “Our Fundraisers” section that raise £100 or more.

10. An annual football match held in memory of Carli Lansley. Page 51. 11. CRY supporters taking part in a Mount Snowdon climb in memory of Jonathan Leigh. Page 52.

13. A CRY voting box for the Tesco Bags of Help Centenary Grant. Page 4.

Images of CRY Patrons and Members of Parliament throughout have been highlighted in red. Copyright © 2019 Cardiac Risk in the Young. Registered Charity No. 1050845 A Company Limited by Guarantee. Registered in England No. 3052985 Registered Office: Unit 1140B The Axis Centre, Cleeve Road, Leatherhead, KT22 7RD

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Issue 79 | May to August 2019


Meet Our Representative Diane Tolley Representative in Worcestershire My 15-year-old son, Robert, collapsed and died of an undetected heart condition while out on his bike with two friends. Robert was a normal, healthy teenager and had just returned from a school Outward Bound course. There were no warning symptoms. A couple who read Robert’s story in our local paper contacted me and said that they had lost their 16-year-old son whilst he was playing football and had recently found a new charity, Cardiac Risk in the Young. I was no longer alone!

Diane’s son, Robert.

That was 23 years ago. I sometimes wonder how different my journey would have been without the wonderful support of CRY and the opportunity of being able to share my experience and feelings with others who have suffered a similar loss.

My daughter, son-in-law and two grandchildren now live in the U.S. In May last year, my daughter rang – Louis, my 14-year-old grandson, was about to be airlifted to hospital after being taken ill during a soccer game.

Louis after his operation.

for CRY. He replied, “I know all about CRY.” He had attended an international conference where Professor Mary Sheppard had lectured and he went on to say, “CRY are doing amazing work in the UK.” It made me feel so proud to be a part of CRY’s work. In September – with the magnificent help of family and great friends doing all sorts of fundraising, car boots, supermarket bag packs, coffee mornings, pub quizzes, raffles and donations from local benefactors – we were able to fund our third screening at Bewdley Medical Centre. We dedicated this screening to Louis for his safe return to us.

I remembered the first mum I talked to after finishing my counseling course, who had lost her son with the same condition. Louis’s operation was a success and I was able to be there when he came home. I am happy to say he is back playing soccer.

My main role with CRY has been as a Bereavement Supporter for 13 years, and I Diane with her daughter, Angela (left), and feel privileged granddaughter, Isabelle (right), at one of their CRY screening events. to have had the opportunity to walk alongside others for a short time on their journey. Within CRY our stories tell of enormous tragedies and heartache, but there is no defeat. There is hope, inspiration, challenge and, of course, love in bucketfuls.

This year I was able to attend Louis’s check-up and my daughter mentioned to the cardiologist that I volunteered

I love and miss Robert every day, and look forward to continuing as area Representative for Worcestershire.

He was diagnosed with Wolff-Parkinson-White (Robert’s condition was hypertrophic cardiomyopathy) and needed to have an ablation. When I put the phone down I just screamed in panic. Would he come through the operation? Would my daughter lose her precious son, too?

www.c-r-y.org.uk

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News from the Chief Executive Dr Steven Cox

CRY Chief Executive

@Drstevenjcox drstevenjcox Thank you for everything that you continue to do to support CRY and raise awareness within your local communities. Included in this section are a number of media stories from May to August, as well as information about some of CRY’s events in this period.

May

Nottinghamshire, Leicestershire, Northamptonshire and Rutland]; West Midlands [Birmingham, Staffordshire, Warwickshire, Shropshire]; East Anglia [Norfolk, Suffolk, Cambridgeshire]; South London; and Cornwall). Voting was open in these areas from July until the end of September, with supporters casting their vote using tokens given to them at the check-out in store each time they shop. Depending on the outcome of the customer vote, CRY either receives £10,000, £15,000 or £25,000 for each of these regions, which will go towards cardiac screening for people aged 14-35 in these local areas. The vast majority of CRY’s community screenings are funded by bereaved families who have been tragically affected by a young sudden cardiac death, so there is no charge to the individual when CRY’s mobile cardiac screening service comes to a local venue. Their support is both tireless and humbling and we simply would not be able to roll out our nationwide programme without this continued fundraising. That’s why we are so thrilled to have been shortlisted in the Tesco Bags of Help Centenary Grant initiative. Our ‘CRY families’ are based in every region of the UK and it will have meant a great deal to them all to see further awareness of CRY in Tesco stores, in the heart of their own communities. This is a truly community-based initiative and we are very proud to be a part of it. Thank you to Tesco, their staff and customers for helping us to save young lives.

CRY selected for Tesco Bags of Help Centenary Grant May 9 CRY successfully applied to take part in the Tesco Bags of Help Centenary Grant initiative in 10 regions around the country. To celebrate Tesco’s Centenary, the supermarket teamed up with Groundwork to deliver a special voting round of its community funding scheme which will see grants of £25,000, £15,000 and £10,000 awarded to community projects. Three groups in each Tesco region were shortlisted to receive the cash award. It was an extremely competitive process, and we were proud to be chosen as one of the groups in 10 regions across the UK (Highland and Islands/North East Scotland; North West [Cumbria and Lancashire]; Greater Manchester; South Yorkshire and Lincolnshire; Mid and West Wales; East Midlands [Derbyshire,

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Alec Brown, Head of Community at Tesco, said: “Bags of Help contributes funds to community projects up and down the country and we’ve been overwhelmed by the response from customers voting in their local stores. We’re looking forward to seeing more projects brought to life.”

CRY’s first Family Research Day May 11 To give some of our supporters a chance to learn more about the impact of CRY’s research, we held our first Family Research Day at St George’s Hospital. There were a range of talks from CRY doctors, including CRY Consultant Cardiologist Professor Sanjay Sharma, CRY Consultant Pathologist Professor Mary Sheppard, and myheart cardiologist Dr Michael Papadakis. The day was terrific, highlighting how CRY’s Centre for Cardiac Pathology and all of our research has changed the way we understand young sudden cardiac death and

Issue 79 | May to August 2019


News from the Chief Executive “She’d just got a new stethoscope that day,” George explained, “so I said let’s listen to each other’s hearts, and she listened to my heart but she heard I had a massive murmur. A normal heart would go, ‘boom boom, boom boom.’ But my heart was, ‘boom… boom…’ So, she didn’t tell me at the time obviously, because I would have been terrified to be honest. But it was pretty much by luck and it was quite amazing actually.” George was diagnosed with coarctation, which is the narrowing of the aorta, and required surgery. He posted a video blog to share his story, and explained his motivation for doing so. screen to prevent it. There were also talks touching on other areas, such as Dr Sabiha Gati’s presentation about her time as a CRY Research Fellow, the studies she completed, and the work she has done since. To read about the day in full, turn to page 16.

June

“Because I do feel it’s really important, because every week 12 young people die of some kind of undiagnosed heart condition. If the UK introduces screening to the NHS programme, then this has been proved to lead to an 89 percent reduction in deaths, so 9-10 people’s lives could be saved every single week.” To continue raising funds and awareness for CRY, George and Amelia also completed a 66-mile bike ride around the Isle of Wight. We are so appreciative of all our supporters who take on challenges like this, and for people like George who use their personal experiences to raise awareness of heart conditions in young people. Cardiac screening must become routine for all young people to ensure that conditions aren’t left undiagnosed.

George and Amelia Ashby interview on BBC Radio Solent June 20 As is often the case with young people who have heart conditions, George Ashby (above, taking part in a cycle around the Isle of Wight) had no idea something could be wrong. His mum, Amelia, a GP, was working late so George decided to visit her after playing football. Luckily, George made a harmless suggestion that eventually led to him being diagnosed with a heart condition.

www.c-r-y.org.uk

Graham Hunter interview on BBC Radio Solent June 20 Since suddenly losing his daughter, Claire, Graham Hunter (above, at CRY’s 2017 Parliamentary Reception) and his family have been fundraising for CRY. They have now raised over £65,000 which has led to the screening

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News from the Chief Executive of more than 1,400 young people. Graham went on BBC Radio Solent to talk about his reaction to George Ashby’s story, and how his family’s efforts have supported CRY. “We lost Claire,” Graham said. “If she had been screened, we’re absolutely positive they would have detected her condition and she would be alive today. The reason I say that is subsequently our son, Peter, and I were screened in a reactive campaign, not proactive, and we were both found to have the same condition that Claire died from. And we are now protected.” Following Graham’s interview, I went on to talk about George’s story and how the use of cardiac screening around the UK needs to continue to advance. The message is getting through, and it’s fantastic that George was identified and has gone down a treatment pathway to prevent any complications from the condition. Many young people are identified routinely, almost by chance within the NHS, with these conditions, but the vast majority will not be identified with these conditions and will be completely missed, which is why CRY wants every young person to have the opportunity to have heart screening. Heart screening is almost routine now in elite sport. If you’re going to go into the military, you have to have heart screening. If you’re going to fly a plane, you can’t get a license without having heart screening with an ECG. But it shouldn’t just be limited to these people. It should be open to everyone, because the majority of deaths occur in the general population.

changed the start and finish venue to Southwark Park, with 1,574 walkers taking part in our new 5.5 mile route. Yet again, we were grateful to have CRY Patron Kathryn Harries in attendance to speak before the walk and be with our supporters at the start line, before they set off and made their way past London landmarks such as The Shard, St Paul’s Cathedral and the Globe Theatre. After the walk, Southwark Park – filled with the music of three choirs, plenty of food and a selection of games – made a fantastic venue for the first CRY Family Picnic. Thank you to all of our supporters who took part on the day, and to our volunteers for helping to make this event run so well with all their hard work. You can read a full write-up of the day on page 18.

CRY’s MP drop-in session at Parliament June 25 CRY’s first drop-in event at Parliament, held at Portcullis House and hosted by long term supporter Kevan Jones MP, surpassed all expectations. CRY Chief Executive Dr Steven Cox 50 MPs came by to with Kevan Jones MP learn more about the work of CRY and sign our pledge to establish a National Strategy for the Prevention of Young Sudden Cardiac Death. This new wave of support in Parliament took our total of MP signatures on our pledge to 171.

CRY Heart of London Bridges Walk June 23 The annual CRY Heart of London Bridges Walk was rather different in 2019. For what was the 13th walk, we

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It was very encouraging to welcome so many MPs and to update them on our campaign. Many of the MPs talked about the impact young sudden cardiac deaths have had on their constituents and the communities they represent. Some had very personal stories of the devastating impact of these tragedies. Thank you to those who attended to show their support for this incredibly important cause, and to Kevan Jones MP for hosting. To read a full write-up of this event, turn to page 23.

Issue 79 | May to August 2019


News from the Chief Executive

July

Cumbria to explain his passionate support for CRY. “We thought to ourselves after we’d found out about CRY that we want to do something about it. And the initial thing we wanted to do was screen his mates, screen 100 of his football team, his close mates, his work colleagues, and it’s just grown arms and legs from there. It’s just got bigger and bigger, and here we are now on his 15th screening day.” I was able to go on the show as well to explain the tests that CRY carries out, and how young people can return to a normal lifestyle after a diagnosis is made.

CRY Patron Simon Halliday collects cheque for £15,000 July 1 Malcolm Craig, the 2019 Master of the Worshipful Company of Gold and Silver Wyre Drawers, chose CRY to be one of the charities supported at their 6 Nations Rugby Lunch event. I was invited to attend along with CRY Patron Simon Halliday (above, left), who collected a £15,000 cheque that was generously donated to CRY.

Once someone has been identified, they’ll either have treatment like medications or they might be asked to avoid certain drugs or medications which can have an impact on the heart. They can have lifestyle modifications, so in some situations they might be told to avoid high impact competitive sport, or indeed with the most common condition, Wolff-Parkinson-White, they can even have that condition completely cured. Many of the athletes who are competing for our country will have had those conditions identified and been cured from them.

August

Turn to page 80 for the full story of the event.

Dave Hughes interview on BBC Radio Cumbria July 17 Dave Hughes lost his son, Daniel, when he died suddenly in his sleep. Dave has been raising awareness and funds for screening to do what he can to ensure other parents don’t suffer the same way, and went on BBC Radio

Prudential RideLondonSurrey 2019 August 4 Thank you to all 35 cyclists who represented CRY at this year’s Prudential RideLondon-Surrey. At such a major event, it’s always great to see a big team putting on their CRY jerseys to ride for us. Thank you also to our volunteers, who help make this event run smoothly each year.

Dave Hughes (right) at a Stoke City FC Premier League match in 2018, when Top Eleven gave CRY their sleeve sponsorship on Stoke’s shirt

www.c-r-y.org.uk

You can read the full-write up of this event on page 20.

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CRY Online Social media Social media is a vital part of how CRY interacts with supporters and, first and foremost, raises awareness of young sudden cardiac death and what can be done to tackle it – from preventative measures (screening) to bereavement support for those affected by a tragedy. In the CRY Online segment, we look back at the fourmonth period the Update covers and include a small selection of social media highlights, such as Facebook posts that reached an amazing amount of people, or supporters who tweeted memorable photos at us. The May-August period is always an eventful one for CRY, but as well as key events such as the CRY Heart of London Bridges Walk and the Prudential RideLondon-Surrey, we had some other major developments to share.

One of our top Instagram posts was a video highlighting some of our biggest news from this four-month period: CRY’s screening programme surpassed the total of 200,000 young people screened! This is a phenomenal milestone for us to reach. It’s a testament to how much our supporters do to raise funds to make these screening events possible, and how fundraising and awareness have increased to ensure that we can screen more and more young people every year. Thank you to all of our supporters for everything that you do. With CRY’s following (‘likes’) continuing to increase on Facebook, reaching over 31,000 by the end of August, it becomes an increasingly valuable platform for us to spread awareness of CRY’s work and young sudden cardiac death. We recorded 1.71 million impressions (the number of times a post is displayed on someone’s personal feed) on Facebook alone through May to August. One of our top Facebook posts shared the story of Aaron Preece, a talented swimmer who was competing at national level. Aaron was diagnosed with Wolff-ParkinsonWhite (WPW) syndrome after having his heart checked at a CRY screening. Following successful corrective surgery, he was able to return to swimming at a competitive level.

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It’s fantastic to see Aaron get back to normal after being diagnosed and undergoing surgery, and that his story can raise awareness of the importance of screening to find these conditions. Another wide-reaching Facebook post shared the news of CRY being chosen in the Tesco Bags of Help Centenary Grant, giving us the opportunity to receive major funding for screenings around the UK. The video in this post received 15,000 views, which helped us raise more awareness of the initiative. This is so valuable for not only raising awareness of CRY, but ensuring as many people as possible voted for us in their local Tesco stores. Interacting with us on social media is an easy way to keep up to date with any CRY information you might need. You will receive updates on upcoming events and screenings; and photos from fellow supporters. Every share of a post helps spread awareness about CRY a little further. So, if you’d like to follow along, here’s where you can find us:

CardiacRiskintheYoung CardiacRiskintheYoung @CRY_UK

Issue 79 | May to August 2019


CRY Online

Our infographics are always an excellent tool for raising awareness on social media, sharing our key messages and information in clear, concise videos. Our top tweet from August, which reached over 70,000 people, was an infographic to highlight the incidence of young sudden cardiac death and what CRY is doing to prevent more tragedies.

In July, as the men’s England Rugby team were getting ready for the World Cup in Japan, we helped with their preparations by giving the players heart screenings. It’s a privilege to be able to provide our expertise and ensure the players are safe, and England Rugby helped spread some awareness as well by sharing a behind-thescenes video, featuring their CRY screening.

Graeme Stewart recently completed a huge challenge for CRY. He cycled 793km nonstop from London to Glasgow in memory of his son, Lewis, who died suddenly in 2018. CRY Patron John Barrowman was kind enough to show his support on Twitter, sharing news of the event to his 500,000 followers to help raise awareness and funds.

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CRY Online As part of the CRY Online segment we will include Facebook posts from Chief Executive Dr Steven Cox (found at drstevenjcox), providing thoughtful responses to news and events from the last few months.

CRY’s initial response to the NSC’s consultation document about the role of cardiac screening in the young The latest consultation document has been published by the National Screening Committee (NSC) to review the role of screening for the risk of sudden cardiac death in the young. The document does NOT recommend population screening for sudden cardiac death in the young. The NSC consultation document FAILS to demonstrate the impact young sudden cardiac deaths have on our society. It FAILS to stress that 1 in 300 people screened have a cardiac condition that can benefit from treatment or lifestyle advice. It FAILS to objectively evaluate the overlap between the current routine use of the ECG in the NHS/medical practice for general diagnostics and monitoring and its role in cardiac screening. It is unbalanced and has interpreted the evidence subjectively with the apparent intent of “kicking the ball into the long grass”. When we met Matt Hancock, the Secretary of State for Health and Social Care, in 2018 we raised our concern about this and he assured us this would not happen. We are urging MPs to establish a national strategy for the prevention of young sudden cardiac death to ensure the government acts to prevent the hundreds of deaths each year of young people from undiagnosed cardiac conditions. As a progressive society it cannot be acceptable that WE FAIL to act in response to the horrendous impact these conditions have on the family, friends and fabric of our local communities when left undiagnosed. This document demonstrates why we now urgently need to establish a national strategy to prevent young sudden cardiac deaths in the UK. Please write to your MP and urge them to sign the pledge to put this strategy in place. Go to www.c-r-y.org.uk/my-pledge for more information.

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It is very easy for policy makers to dismiss the impact of a young sudden cardiac death, choosing to turn a blind eye to the impact it has on family and friends after the tragedy. This has to be part of any policy weighing up the costs and the benefits of action. This should not be framed as one death balanced against the experience of people going through the testing procedures. Rather it should be recognised that it is about a family and friends having their lives ripped apart, changing forever. You can read the full consultation document by going to https://legacyscreening.phe.org.uk/suddencardiacdeath. CRY provided an official response to the NSC’s consultation document in September to address a host of faults, including the following: The NSC continue to be dismissive of the science which is informing everyday medical practice in the UK by reiterating the fact that there has been no randomised control trial of 100,000s of young people over a 20+ year period. They fail to recognise that conducting RCTs on these conditions is UNETHICAL and would lead to young people dying in the pursuit of “better” science. CRY’s research programme will continue to focus on answering the inevitable questions raised as medicine progress in an ethical way, but there must be an acceptance that screening will save young lives. It is unacceptable for the NSC to adopt a contradictory position where the ECG IS an accurate test if you experience symptoms, but the ECG IS NOT an accurate test if you DO NOT experience symptoms. The research has shown that screening based on symptoms (without an ECG) is more expensive and identifies fewer people at risk. The way the NSC has framed the issue is incorrect. The current NSC screening programmes (e.g. breast cancer) focus on identification of conditions/diseases, whereas this policy is framed as identification of the risk of sudden cardiac death. It must be reframed to be consistent with the other NSC policies, “screening for cardiac conditions in young adults”. Policy must be informed by science, and CRY’s research programme, led by Professor Sanjay Sharma, is leading the way internationally in providing the evidence to better understand these conditions and save more young lives. But it is unacceptable that hundreds of young people continue to die suddenly every year from cardiac conditions which could be identified through screening with an ECG. Thank you for your support and enabling CRY to offer a screening service to tens of thousands of young people every year, raising the funds and awareness necessary to save young lives. Thank you.

Issue 79 | May to August 2019


CRY Centre for Cardiac Pathology (CRY CCP) Report

By Professor Mary Sheppard

Professor Mary Sheppard, Consultant Cardiac Pathologist

Susanna Cooper, Laboratory Technician Khari Edwards, Laboratory Technician

The CRY Centre for Cardiac Pathology is a national referral centre for the pathological investigation of young sudden cardiac death (YSCD) with an established national database.

Causes of death May to August 2019

for genetic testing in sudden cardiac deaths. Genetic analysis combined with clinical follow-up will give valuable information in the future for families. We were able to make a diagnosis of the cardiac cause of death in all cases, with the majority being sudden adult death or cardiomyopathies (75% of cases), all of which are important for family screening.

Departmental highlights • We had our annual Adult Cardiovascular Pathology

Course on the 13-14 June 2019. We had 85 national and international attendees. We also had 14 specialist trainees ST1s from London and the South-East Deanery, and 17 speakers for both days.

We had 170 heart cases from May to August 2019, with causes of death given in all cases (see above). Our database forms a valuable source of research within St George’s clinical cardiology team. We are also increasingly getting splenic tissue (see below)

Spleen and hearts for genetic testing

• Both technicians, Khari Edwards and Susanna Cooper,

are going on to do higher degrees and we congratulate both on their success.

• Two new technicians, Antonella Cogoni and Emelia Zullo,

have joined our department. We look forward to working with them both.

Invited lectures • CRY Conference, St George’s

University of London (SGUL) – Lecture on sudden cardiac death in the young. Building a national database.

• Pan London Aortopathy Group,

SGUL – Lecture on update on the

www.c-r-y.org.uk

histopathology of inherited aortic diseases. • Leeds Institute of Cardiovascular

and Metabolic Research (LICAM) Leeds – Lecture on creating a national database in sudden cardiac death.

• Sudden cardiac death in sport.

KAVA congress centre in Brussels, Belgian Forensic Society.

• SGUL Summer School – lecture on

cardiac disease.

• Ottawa, Canada – Cardiac

Arrhythmia Network of Canada.

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CRY Screening Report Between May and August 2019 CRY screened over 11,800 people 729 people were screened at our National Screening Centre at St George’s Hospital, London, funded by donations from Leathersellers’ Company Charitable Fund, the Edith Florence Spencer Memorial Trust, Chapman CT, The National Lottery Community Fund, and the Carval Foundation. 844 athletes were screened at sports screenings, including: Bisham Abbey EIS, Colchester United FC, Middlesex County Cricket Club (MCCC), Middlesex County Cricket Club Academy, Millwall FC, Somerset CCC, Leicester Tigers Premiership Rugby, Bristol City FC, Worcester Warriors Premiership Rugby, Brighton and Hove FC, Welsh Rugby Union – World Cup squad, AFC Wimbledon, England Rugby – World Cup squad, Ipswich Town FC, Yorkshire Carnegie RFU, Exeter Chiefs Premiership Rugby, Leicestershire CCC, Manchester City FC Women’s Team and Development, Gloucester Premiership Rugby, Bristol Bears Premiership Rugby, London Irish Premiership Rugby, Saracens Premiership Rugby, Lilleshall EIS, Wasps Premiership Rugby, Newport Gwent Dragons Rugby, Sale Sharks Premiership Rugby, Northampton Saints Premiership Rugby, Newcastle Falcons Championship Rugby, Harlequins Premiership Rugby, Bath Premiership Rugby, and Coventry City FC. 8,854 people were screened at family screenings. These were held in memory of: Charlotte Adams (Maldon), Alan Bain (Orkney), Jack Boulton (Bristol), Jenny Bucknell (Staines), Jordan Burndred (Biddulph, Stoke-on-Trent), Darren Clark (Scunthorpe), James Colman (Nailsea), Bruce Cousins (Rotherham), Ben Daniels (London), Matthew Dewhirst (Telford, Shropshire), Aaron Dixon (Hartford, Congleton, Sandbach), Harry Dubois (Royton), Gary Edwards (Taunton), Rory Embling (Ackworth), Morgan

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Evans (Kingussie), Josh Fell (North Humberside), Ben Forsyth (Stirling, Musselburgh), Jordan Grant (Preston), Ben Hammond (Kent), Thomas Hardman (Heywood), Laura Hillier (Northamptonshire), Daniel Hughes (Barrow-in-Furness), Michael Land (Pontefract), Carli Lansley (Southendon-Sea), Adam Lewis (Warrington), Joseph Leyland (Cheadle), Dean Mason (Carmarthenshire), Peter McAvoy (Dundee), Josh Merrick (Manchester), Levon Morland (Durham), Owen Morris (Carmarthenshire), Luke Moss (Chorley), James Murgatroyd (Etwall), James Nicholas (Prescot), Andrew Oliver (Darlington), Christopher Parr (Leek), Andrew Patterson (Bolton), James Patterson (Hornchurch), Ben Ramsay (Felixstowe), Craig Rawlinson (Skegness), Tom Reid (Leeds), Robert Rowan (Brentford), Danielle Rowe and Matthew Dewhirst (Telford), Matthew Seymour (Bishopton), Madeline Siddall (Sheffield), Benjamin Michael Smith (Eastleigh), Robert Daniel Smith (Langley Park), Zoe Teale (Coventry), Jack Thomas (Blackwood), Ryan Tilley (Leicester), Isabelle Tudisca (Chigwell), Richard Waight (Doncaster), Neil Ward (Derbyshire), Lily Webster (Stowmarket), and Robert Worboys (Glasgow, Edinburgh, Bedford). 495 young people were screened at five school screenings held at: Queen Elizabeth Hospital School, Bristol; Wellington College, Crowthorne; Charterhouse, Godalming; Withernsea High School, Withernsea; and Headlands School, Bridlington. 921 people were screened at nine further screenings held at: Devonshires, London; Cummins Power Systems, Daventry; Kingston Youth Centre, Hull; Sheffield United; Whittlesey Masonic Centre; Bridlington CYP, Bridlington; Shrewsbury Academy, Shrewsbury; and Nationwide Building Society, Stoke-on-Trent.

What happens at a screening? The basic test is an electrocardiogram (ECG) which is a simple non-invasive and painless test that examines the electrical activity within the heart. Small stickers are placed at strategic points on the chest, arms and legs. Flexible leads (called electrodes) that extend from the ECG machine are then attached to these stickers. The electrical rhythm of the heart is recorded and printed out. This part of the process only takes two to three minutes to perform. The ECG printout is then reviewed by a doctor in conjunction with a personal and family history questionnaire. If a more detailed image is needed (about 5–10% of individuals), an echocardiogram can be taken – this is similar to the ultrasound scan that is used for a pregnant woman to check the health of her baby. Soundwaves echo against various parts of the heart and they are recorded on a screen. This provides a detailed picture of the heart’s structure and how well it is functioning. This takes about 30 minutes to perform. The screening programme is under the aegis of Professor Sanjay Sharma.

Issue 79 | May to August 2019


CRY’s new screening milestone

CRY has now screened over

200,000 young people!

CRY reached a phenomenal milestone this summer. 24 years after being founded, with more and more screening events held every year, CRY surpassed a total of 200,000 young people screened. Alongside the research we complete, the awareness we raise and the bereavement support we offer, completing screenings to prevent more tragedies is at the forefront of everything CRY does. Reaching this total is a fantastic achievement for CRY and all of our supporters. This further reinforces how CRY is leading the way in the prevention of young sudden cardiac deaths. These screenings will have saved many lives and diagnosed many more with conditions that they will have been able to treat using medication, surgery or lifestyle changes. And our progress isn’t slowing down. CRY is on track to screen more than 30,000 young people in 2019, an increase from 29,000 last year. As we continue to gather the support of more MPs, with the signatures of 175 on our pledge to establish a National Strategy for the Prevention of Young Sudden Cardiac Death at the time, we can strive to make an impact in government as well to further the work we are already doing.

CRY Chief Executive Dr Steven Cox said. “Each year the programme has grown as more and more young people are given the choice to have their hearts tested. I want to thank all the families and supporters across the UK who have made it possible to reach this incredible milestone. Specialist cardiac screening is still the most effective way we have of saving young lives from these silent heart conditions which can have such devastating consequences when left undiagnosed. “The current position where there has to be a tragedy before other family members are tested to find out if they are also at risk is madness. The aim must be to prevent the first tragedy in every family. One day, all young people will routinely have their hearts checked and people will look back with disbelief that this was not a normal part of preventive health. “Through supporting CRY’s screening and research programme, families all over the UK are showing what can be achieved. They are building a future where young lives will be saved in memory of all the young people who have died so suddenly.”

For information on what you can do to help and how you can contact your MP, go to https://www.c-r-y.org.uk/ contacting-your-mp/

Reaching this screening milestone is only possible because of our incredible supporters. Without your help, we wouldn’t be able to raise the funds necessary to secure screening events all around the UK, ensuring hundreds of young people are tested every week.

“We began screening young people over 20 years ago and I am so proud that we have now exceeded 200,000 tests!”

Thank you for all you do. With your support, we will be able to continue screening more young people every year.

www.c-r-y.org.uk

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Alison’s Column CRY’s expert medical team: Dr Michael Papadakis Michael Papadakis cannot remember a time that he did not want to be a doctor.

Alison Cox MBE CRY Founder

for his schoolwork.

His mother, devoted to her husband and children, was a dynamic business woman who proved a tough taskmistress and, from the start of his early days at his primary school in Chania, Crete, emphasised that she expected an 80% pass rate

His father, Dr Papadakis, who oversaw Chania Hospital where he was a physician, had sacrificed the opportunity of an academic career in Athens to ensure he could spend time with his family. This was a decision his children did not fully appreciate until they had matured and not only proved of great significance to them, but also hugely benefited the people of Chania, especially after he set up a dialysis clinic at the hospital. Dr Papadakis took a close interest in his children’s education and stressed the importance of always working hard – no matter what it was that you were working at. Michael enjoyed his primary school and from an early age took his father’s advice seriously. Michael also soon learnt that the best way to make friends was to be in a team. He was especially proud when chosen to play for his school volleyball team, recognising the unique satisfaction of the group celebration if they won. He found the move to Athens for his A-level education difficult. Life suddenly became more serious. The simplicity of his childhood in Chania seemed a long time ago. He was an ambitious student whose goal was to achieve the A grades in his exams that would secure his place for medical training at one of the big London hospitals. Dr Papadakis had been concerned about the unimpressive medical training that was currently available in Greece which was struggling on every level. He greatly respected what was accessible in the UK and had cautiously discussed with Michael the opportunity to study there. A deep-thinking, highly motivated young man, Michael planned his career conscientiously and covered potential risks when possible. However, there was one thing that startled him that he had not considered. He had not realised what a big jump it was to go from school-level English to using English in England, and the shock of suddenly finding that he had not reached the required

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standard to secure his place to study medicine at a top London hospital came as a jolt. English was a subject that all Greek students had an opportunity to study at school, but improving his English to what was required in England, and fast, was an uncomfortable challenge! Michael spent his first two years in the UK at Charing Cross Hospital, and then moved on to Imperial to complete his training as a medical student, which he graduated from in 2001. He quickly realised that those who chose to specialise in cardiology were invariably amongst the very best students and that the standard required of them was exacting. Working within his comfort zone to do well was no longer an option. Having tried and tested himself successfully in England he still found he was always questioning whether he should return home to Greece. A cautious young man, he was pleased to have achieved his long held ambition of the medical training he wanted and needed, but was acutely aware of how much he missed his family and homeland. Besides, he had the necessary commitment of his Greek Military Service to complete. So, at 25, he spent the following year as a Naval medical Officer (right) – a period which gave him more time to think! An interesting requirement if you were studying medicine that would also permit you to be able to work in Greece was that the student needed to complete a year as a GP in a rural environment. In 2004 Michael chose to do this in the barren setting of the Kampanos mountains, which proved to be a very different experience from anything he had previously attempted. The “mountain clinic”, with its brutal winter weather, was mostly concerned with elderly citizens in an environment where nature did its worst with impunity. Consequently, their children left home at the earliest opportunity to seek jobs in the city. Parents (and grandparents) were left to manage on the mountain as best they could. As they aged, so did their equipment and facilities. Michael’s patients proved enormously grateful for any help available, and the extraordinary experience – so different from his own upbringing – served to deeply influence his perspective on life. He learnt to value whatever facilities

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Alison’s Column were available, and, where possible, adapted to fixing (or finding) what was missing. He learnt how to manage difficult situations alone without any support or colleague to consult in a crisis, and how to single-handedly prepare for and deal with emergencies. As facilities for the clinic deteriorated he learnt where to look for second-hand replacements for the medical items he required, take advantage of all offers from doctor friends, as well as scouring other clinics that might have something he could use in the ‘mountain clinic’ that was no longer required elsewhere. Ultimately, the courage and dignity with which his elderly patients attempted to manage their health problems inspired him to ask his family to finance four medical centres in the mountains, which included providing the luxury of basic heating and medical equipment, and found considerable satisfaction in knowing that he had been able to make a difference. By the time he was 30 Michael had met the standard medical requirements for both Greece and England and was quite clear about the direction in which he wanted to go.

Michael talking to bereaved families that attended CRY’s 2019 Family Research Day. You can read more about this event on page 16.

Then in 2007 – after two years working in the UK as a junior doctor doing his clinical training, followed by training as a registrar helping to set up the Acute Medicine unit at Chelsea and Westminster Hospital – two major things happened. First, through friends, he met Elena Marinaki, a radiologist. Her family background was a complicated one that had been affected by the struggle her mother had wrestled with after the illness and subsequent death of her father at a young age. In spite of her difficult personal circumstances Elena had managed to qualify as a doctor in Italy and then move to specialise as a radiologist in Greece. For several years, because Michael was in the UK and she was in Greece, they were only able to see each other intermittently and according to the time allowed by their demanding personal schedules. Finally, Michael suggested they should commit to living together and have a six-month trial period which proved a successful decision, resulting

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in their marriage and becoming the proud parents of three beautiful, energetic children. They had an orderly life, working in their separate hospitals in England and spending holidays with their families in Chania. Michael’s second “life changing” event was when he met CRY’s Consultant Cardiologist Professor Sanjay Sharma and, in October 2007, was delighted to be invited to start his training as a CRY Research Fellow at St George’s Hospital. We have been lucky indeed that Michael chose to be interested in focusing on inherited cardiac conditions that affect fit Michael at a CRY myheart meeting in 2014 and healthy young people. His impact has been significant. Since he joined CRY he has advanced education in the field of sports cardiology by building educational material for the European Society of Cardiology and launching a novel degree in sports cardiology – the first post graduate qualification of its kind. Michael has transformed CRY’s myheart group since he has taken over, now holding meetings twice a year in a central London location. The myheart group has thrived under his watch, expanding exponentially with 530 young members who have greatly benefited from the 65 videos he has created exclusively for them which cover all the issues they are likely to deal with. Michael is an enormous asset for CRY and his selfdiscipline, commitment and ability sets the bar high for the fortunate medical recruits that are accepted onto CRY’s training programme and subsequently become a part of the ambitious research into young sudden cardiac death that he and his team aspire to.

Michael is a Reader in Cardiology and Honorary Consultant Cardiologist. His clinical interests are inherited cardiac diseases, sports cardiology, cardiac MRI and echocardiography. His research is focused on inherited cardiac disease, prevention of young sudden cardiac death, sports cardiology, and cardiac imaging. He is accredited with more than 60 publications in peer-reviewed journals. He is chair of the section of Sports Cardiology of the European Association of Preventative Cardiology (EAPC), Fellow of the European Society of Cardiology, and a Member of the Royal College of Physicians.

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CRY’s first Family Research Day Since completing her time as a CRY Research Fellow, Dr Gati has moved on to become a successful consultant cardiologist. She has also started an educational training programme for GPs throughout the UK as a new initiative under CRY, which trains GPs how to better analyse abnormal ECGs for young individuals. With her impactful research and the work she has continued since, Dr Gati is a fantastic example of how valuable our Research Fellows are.

On May 11 we hosted the first CRY Family Research Day, giving some of our supporters a chance to learn more about the massive impact of our research. Once CRY Chief Executive Dr Steven Cox began the day with a brief overview of how our research and team of specialists have developed over the years, CRY doctors shared their insight on a variety of subjects. Dr Sabiha Gati described what it means to be a CRY Research Fellow. She shared what her time with CRY involved, from serving as a specialist at over 80 screenings throughout the UK to reviewing referrals in CRY clinics (primarily inherited cardiac diseases at University Hospital Lewisham). Dr Gati’s research focused on the structural changes within young, exercising individuals’ hearts. The study garnered worldwide interest and Dr Gati went on to receive a host of prizes.

Professor Mary Sheppard spoke next about her role at the CRY Centre for Cardiac Pathology (CRY CCP). Professor Sheppard first shared a little information on how much work the heart has to do and exactly how it functions, before moving on to how her work as a pathologist involves looking at the abnormalities in the heart muscle. With Dr Tim Bowker, who is now one of CRY’s Trustees, Professor Sheppard produced one of the first surveys of sudden, unexpected cardiac death in the UK. “It was the first paper, really, to emphasize the entity of sudden adult death, or sudden arrhythmic death,” Professor Sheppard explained. “Because up until then [1994, when the survey was carried out] most people believed you died of coronary artery disease... We found that, no, in a significant number of sudden unexpected deaths, 7%, the pathologists found nothing... “The Fellows and the clinicians and cardiologists have now begun to expand our knowledge of these causes. This paper was seminal in telling pathologists when you find a sudden death – a young person, heart is normal, toxicology is negative – you have to do further investigations. You cannot simply leave it unexplained or unascertained.” After discussing some of her earlier work, Professor Sheppard went on to explain how the CRY CCP has excelled even more since moving to St George’s Hospital in 2014, becoming the largest pathology unit dealing with sudden cardiac death in the world. The CRY CCP has changed the way we understand and prevent young sudden cardiac death.

Professor Mary Sheppard giving her presentation

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CRY myheart cardiologist Dr Michael Papadakis followed,

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CRY’s first Family Research Day looking at how CRY’s research has changed the way we investigate families after a young sudden cardiac death. Dr Papadakis explained everything that goes into this kind of assessment, the characteristics of SADS victims, why there is a high prevalence of Brugada Syndrome, and the characteristics of various conditions like hypertrophic cardiomyopathy (HCM) and idiopathic left ventricular hypertrophy. To finish, Dr Papadakis emphasised how important teamwork is in all areas to research these conditions and complete the necessary testing for people all around the UK. “It’s multi discipline teamwork,” Dr Papadakis said. “A cardiologist cannot do it alone. We also need, apart from the geneticist and the pathologist, our nurses, our genetic counsellors, the GPs – [who are] very important, those are the individuals who’ve been dealing with the family for many years and will continue dealing with that family, so they need to keep very well informed. And obviously the psychologist and our patient groups, like Cardiac Risk in the Young, who support the families and also support our research.” Finally, there was no one better to discuss how CRY’s research has transformed the way we screen young people than CRY Consultant Cardiologist Professor Sanjay Sharma. CRY began by facing opposition to the pursuit of cardiac screening across the UK. Professor Sharma listed some of the concerns and opinions others had, questioning the use for screening due to the supposed low incidence of sudden cardiac death, a high number of false positives, whether we have the necessary specialists, and the cost. “This was never going to take off if it wasn’t for someone with the energy that Alison [Cox, CRY Founder] has,” Professor Sharma said. He also credited the vital work of CRY’s doctors. “We had a battery of Research Fellows that

Professor Sharma (right) recording a video for CRY with June and Dave Boulton, discussing CRY’s research and facilities at St George’s Hospital

have been through us, and all of these people [referring to seven Fellows shown in his presentation] are now consultants... and all contributed so much to the way that we interpret a young person’s ECG. “Probably one of the proudest things that’s ever happened to me was that this 10 to 12 years of intensive research funded by all of [CRY’s supporters] culminated, for the first time in the history of sports cardiology, in something called the International Recommendations... i.e., if you used these criteria [to interpret ECG results] anywhere in the world, you were doing a good job.” CRY research has also reduced false positive rates from 22% to just 3% in the white population. “So, [when] your family or your children have an ECG screening done by CRY, there’s only a 3% chance that we may say we need to do more tests,” Professor Sharma added. “And there’s a 1 in 300 chance that we’ll say to you there’s something wrong with your [son or daughter], and we can actually do something about it and prevent a sudden death in most people.” Professor Sharma finished the event’s research presentations with a thank you to supporters, who truly make our research possible with their tireless fundraising efforts. “I’d like to thank you all for raising so much money to support a charity whose mission it is to reduce young sudden cardiac death,” Professor Sharma said. “Your money has gone a long way into improving the way that we diagnose people, improving what we know about causes of sudden death, improving methods of risk stratification – i.e. when someone is diagnosed, how do you predict someone is going to die or not.

Dr Gati (right) with CRY supporters

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“Clearly there’s a long way to go. We want to minimize the risk of sudden death and there’s a lot to learn, and I hope for your continued support.”

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CRY Heart of London Bridges Walk 2019

For its 13th year, the CRY Heart of London Bridges Walk found a new home. The event started and finished at Southwark Park, as 1,574 walkers gathered together for the walk and the first CRY Family Picnic. Before walkers departed at 11am, CRY Patron Kathryn Harries and CRY Chief Executive Dr Steven Cox gave speeches to the mass of supporters that had congregated around the bandstand in the middle of the park. “It’s lovely to see so many of you here,” Kathryn said to begin. “I just want to congratulate all of you and all the CRY team for turning a little idea back in 2006 into this amazing annual event. “I’m not going to try to lead this year because you’re all way faster than I am now I’m old,” Kathryn joked. CRY Patron Kathryn Harries giving “Everybody overtook me in her speech the first stride [last year], so I shall be amongst you and I just want to commend you all for having the courage and the fortitude to be here together. I hope you all find support in each other’s experiences and enjoy the walk. Thank you very much indeed.”

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CRY Chief Executive Dr Steven Cox spoke next, again thanking our supporters for attending and all they do to fundraise and spread awareness. “This is our most important event of the year, to bring together your family, friends, to raise awareness of Cardiac Risk in the Young and to remember those who are no longer with us,” Steve said. “We expect there to be about 1,500 walkers here today, walking in memory of 150 young people… “There is no other day when there will be so many people who you will be with who can understand what you have been through,” Steve said to finish. “So many families who, like you, want to help save young lives. Thank you for coming today and being part of this special event.” Then, after a minute’s silence, the walkers set off. Our new 5.5 mile route wound its way past many iconic London sites, giving walkers the opportunity to see London from a different perspective. The walkers passed through the cobbled streets of Shad Thames and Butlers Wharf, home to many converted shipping containers and warehouses dating back to the 1800s. Other famous landmarks such as Tower Bridge, The Gherkin, The Shard, St Paul’s Cathedral, the Globe Theatre, HMS Belfast and the Tower of London could be seen from various points along the route, providing perfect opportunities for photographs. Walkers collected medals upon their return as they

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CRY Heart of London Bridges Walk 2019 headed into Southwark Park to rest and connect with others. Shortly after most of our walkers had returned, CRY Founder Alison Cox spoke. “Hearing how others manage can provoke a new way forward,” Alison said when sharing how valuable taking part in the walk can be. “Talking is liberating, and sharing such sadness with those who totally understand can be a relief… “Perhaps on your way home you will reflect on your experiences today,” Alison added. “We hope that you will feel uplifted with what you have seen and what you have heard. Please do feed back, please do let us know. We are dedicated to reducing your suffering – it matters to CRY.” The setting of Southwark Park gave the event a far more communal atmosphere following the walk. Plenty of food was on offer, along with a handful of games to enjoy such as pop-up tennis, football, pat-ball, and street golf provided by Sam Bodmer from Southwark Council Sports Team and Charlie Baldwin from Everyone Active. We would like to thank them for giving up their time to coordinate this on the day. Thank you also to Yummy and Beyond, Scoff ‘N’ Nosh, Smokin’ Bean Coffee Truck, Paddy’s, and Chocolate Balloons for their delicious food and drinks. As the picnic got underway, Southwark Park was filled with the music of three terrific choirs. Thank you to the South London Rock Choir, Note-Orious from East Dulwich, and Nunhead Community Choir for all giving wonderful performances, adding more energy to the venue through the afternoon. Touching displays were also included for walkers to share photos and messages

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to remember those that have died suddenly. Walkers were able to scan the QR codes on their Bridges Walk t-shirts to post photos and captions onto a big screen, while a smaller message board was also available for people to share notes in memory of those they were walking for. The CRY Heart of London Bridges Walk is always an emotional day, and it’s a special event for everyone involved. Thank you to all of our supporters for coming, and to all of our fantastic volunteers for helping the day go so well. Events like this would not be possible without you! Thank you to all of our sponsors for their support: Shore, Unum, ServiceMaster Clean, Emily Crisps, Chubb, Dairy Crest and Eat Natural. Finally, thank you to the community of Southwark for being so welcoming to CRY, as we look to establish Southwark Park as the new home of this event. If you would like to be involved in any way next year, please email events@c-r-y.org.uk. All of the photos from the day can be viewed on CRY’s Flickr page here: https://bit.ly/31tWbXS.

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Prudential RideLondon-Surrey 2019

Thank you and a massive congratulations to the 35 cyclists who participated on Sunday 4th August, taking on what is known as the world’s greatest festival of cycling; the Prudential RideLondon-Surrey. Around 25,000 cyclists took part in the event, starting from the Olympic Park in Stratford, as early as 5.45am, with the first riders reaching Hampton Court at around 6.40am. The route then lead the riders down through the Surrey boroughs of Woking and Guildford, before taking on the hill climbs of Mole Valley on the way to the spectacular finish line at The Mall, Westminster. Thousands of spectators took to the roads to cheer on the participants, including CRY volunteers and staff who were encouraging Team CRY. They supported along the route early in the morning at Piccadilly, Dorking, and Wimbledon and near the finish line down The Mall, in Westminster. CRY’s Chief Executive, Dr Steven Cox, was supporting on the route at Newlands Corner. Team CRY were congratulated and welcomed back at the meet and greet area in Green Park by CRY

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staff. Andy Clarke, one of CRY’s longstanding volunteer massage therapists, was there to give well-deserved massages. CRY riders were given a #CharityHero medal along with some snacks and refreshments. After taking their photos and meeting the family and friends of Team CRY, it was great to speak to the team about their experience. We are so very grateful to all of our cyclists for taking on this challenge and for choosing to do so for CRY. We would like to say a big thank you to the CRY volunteers for their help on the day: Jenny Boag; Andy Clarke; Krisztina Cserhalmi; Kerry Houlton; Diana Hunt; Pat Jones; Becci and Arthur Robinson; and Julien and Rowena Upson. Finally, thank you to Nākd and Trek Wholefoods for donating post-race refreshments for our riders. CRY has charity places for next year’s RideLondon-Surrey 46 and 100 event. As we celebrate CRY’s 25th anniversary next year, we are hoping to have the biggest team to date. The ballot for the 100-mile event is now open. If you would like to cycle for CRY next year, please complete an interest form or email events@c-r-y.org.uk or enter the public ballot by going to: https://www.c-r-y.org.uk/ridelondon/

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Prudential RideLondon-Surrey 2019 CRY cyclists were: Nicholas Brewster Anthony Britch (in memory of Anthony Fitzgerald) Jamie Stephen Couling (in memory of Emma Broad) Michael Curtin (in memory of Stephanie McLean and James Pettifer) Darsh Dhillon (in memory of Anthony Fitzgerald) Jemima Dhillon (in memory of Anthony Fitzgerald) Dave Doran Christopher Ellis-Keeler (in memory of Anthony Fitzgerald) Kiley Ganderton (in memory of Anthony Fitzgerald) Charlie Gilbert (in memory of Olivia Woodward) Taylor Hawkins Alex Hayman (in memory of Jonathan Hayman) Melanie Hill (in memory of Christopher Hill) Timothy Samuel Hodges Andy Hunt (in memory of Matthew Hadfield) Ben Jacobs (in memory of Anthony Fitzgerald) Alex Joannou (in memory of Alex Townsend) Tom Ledgard (in memory of Kris Ledgard)

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Prudential RideLondon-Surrey 2019 David John Leigh (in memory of Jonathan Andrew Leigh) Margaret Fisher (in memory of Emma) Amy Mason Joanne Matthews (in memory of Oliver Griffin) Wendy Matthews (in memory of Oliver Griffin) Nicole McShane Stuart Paul (in memory of Jenni and David Paul) Neil Philip Quilter (in memory of Charlotte Adams) Anthony Reeve (in memory of James Reeve) Keith Shuttler (in memory of Johnathan Andrew Leigh) Terry Sowle Jack Storr (in memory of Jonny Leigh) Nicholas John Suggit Nicola Tait (in memory of Kris Cook) Paul Turnham (in memory of Freya Cox) James Frederick Vevers (in memory of Anthony Fitzgerald) Simon William Vevers (in memory of Anthony Fitzgerald)

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CRY’s first drop-in event at Parliament on their constituents and the communities they represent. Some had very personal stories of the devastating impact of these tragedies. “We are continuing to urge all MPs to help establish a national strategy for the prevention of young sudden cardiac death to ensure the government acts to prevent the hundreds of deaths of young people each year from these undiagnosed cardiac conditions.” The event was set against the controversial backdrop of the recent news that a revised consultation document from the National Screening Committee (NSC) is set to recommend ‘against’ screening for the risk of sudden cardiac death in the young.

CRY received a host of new MP support at its first drop-in event at Parliament 50 MPs came to our first ever ‘drop in’ session, held at Portcullis House and hosted by long term supporter of CRY and Chair of our All-Party Parliamentary Group (APPG), Kevan Jones MP (above, right, with CRY Chief Executive Dr Steven Cox). Kevan first became involved with CRY following the sudden death of the son of his friend, Jeff Morland. Levon was aged just 22 when he died from a condition known as Wolff-Parkinson White (WPW) in 2002.

“Whilst progress is being made to save young lives, this latest NSC consultation document is very disappointing,” Dr Cox says. “It FAILS to demonstrate the impact of young sudden cardiac deaths on our society and does not objectively evaluate the overlap between the current routine use of the ECG in the NHS/medical practice for general diagnostics and monitoring, and its role in cardiac screening. Furthermore, it FAILS to stress that 1 in 300 people screened have a cardiac condition that can benefit from treatment or lifestyle advice. “As a progressive society it cannot be acceptable that WE FAIL to act in response to the horrendous impact these conditions have on the family, friends and fabric of our local communities when left undiagnosed.”

“Sudden cardiac death is a terrible tragedy to be inflicted upon any family,” Kevan said after the event, “and one that can be prevented by giving every young person the opportunity to have their hearts tested.” Following the success of the event the number of MPs who had signed up to CRY’s #MPSupport4CRY rose all the way to 171.

CRY Founder Alison Cox with Julian Lewis MP

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CRY Chief Executive Dr Steven Cox commented; “It was very encouraging to welcome so many MPs to our event at Portcullis House and to update them on our campaign. Many of the MPs talked about the impact young sudden cardiac deaths have had

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Our Fundraisers Entries appear in the following section according to when CRY sends written receipt for funds raised. The following fundraising was receipted from May to August 2019.

Corrections

In Memory of

Matthew Hughes

Unfortunately, due to the size of the Update, with so many fundraisers to acknowledge and there being some overlap with memorial fund names, there can occasionally be mistakes. We always strive to enforce new methods to eradicate such administrative errors, but we apologise if you have ever been affected in some way by this.

A £100 donation from Frances Griffiths in memory of her grandson, Matthew Hughes, was incorrectly recorded as in memory of Matthew Griffiths. We apologise for this mistake.

If you see a mistake in the Update or you have any questions, please do not hesitate to contact me at tom@c-r-y.org.uk. Here are corrections from issue 78.

In Memory of

Charlotte Adams

Amy Mclean sent in £700.

Darren Bird and seven friends climbed Mount Snowdon and raised £470.

Dan Tidmarsh climbed Mount Snowdon and raised £550.

Hayley Owen sent in £100 raised through a ‘Guess the Name of the Bunny’ Easter event.

In Memory of

Adil Ahmed

• Sam Ahmed donated £100. • Mudassar Ahmed donated £100 in memory of his brother. •

Sadash Banger sent in £100.

In Memory of

Tom Aynsley

Belinda Aynsley donated £240.

In Memory of

Andy Banks

In Memory of

Robert Allan

Lisa Allen sent in £100.

Barclays Payroll sent in a matched giving donation of £500 in respect of Christopher Rushworth’s ‘70s/’80s charity fundraiser.

Louise Banks organised a ‘70s/’80s charity night and raised £550.

In Memory of

Jack Atkinson

Richard Baker sent in £305 raised from an Easter egg raffle at the Brace of Pistols Pub.

William Walton donated £215.

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In Memory of

Cecilia Barriga

Mike Fleet donated his fee of £100 for his services to Walton Athletic Club.

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Our Fundraisers In Memory of

Matthew Beadle

John Stock sent in £200 on behalf of the Greenwich Rotary Club.

In Memory of

Brett Beasey-Webb

Scott Barden and Ian Morley organised a charity football match and raised £2,000.

In Memory of

Guy Bewick

Reverend Clapham forwarded £1,871, representing donations received in lieu of floral tributes.

In Memory of

Caroline Blackman

Alicia Mann sent in £250

In Memory of

Steven Blair

In Memory of

Thomas Bennett

• Marie-Claude Savary sent in £300 on behalf of Mic and Jacques for their wedding. • The Braithwaite family sent in £200 in

repect of Georgi’s wedding. •

Jacqueline Bennett donated £200.

Christian and Alex donated £150.

Andrea Pardo donated £150.

Deborah Jarvis donated £100.

Georgina Bennett forwarded £175, including: £75 from Catherine and Francois; and £100 from Marianne and Andre for Georgina and Nan’s wedding.

In Memory of

Toby Berlevy

Toby’s family and friends sent £2,117 to CRY representing donations received in lieu of floral tributes in his memory.

In Memory of

Richard Bethell

Jeffrey Bethell sent in £1,095 donated in lieu of floral tributes in memory of his father-in-law, William Jones, and William’s grandson, Richard.

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Susan and Hunter sent in £205.

In Memory of

Graeme Blenkinsop

Miss Bryant sent in £100.

In Memory of

Sarah Booth

Robert Booth sent in £350 raised by Michael O’Connor and his colleagues at Invest NI through a weekly Premier League score predictor competition.

In Memory of

Daniel Boreham

Chelmer Valley High School sent in £238.69 raised from an annual football match.

In Memory of

Jack Boulton

June and Dave sent in a further donation of £1,180:

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Our Fundraisers In Memory of

“Jack’s Day was held on 24th May 2019. The evening was a great success and everyone enjoyed watching the football match between Saltford AFC and Keynsham CC, of which some of the team players had known or played with Jack. This always makes the occasion very special. The local businesses gave raffle prizes once again and in all the event raised £1,180 in memory of Jack for CRY.” June Boulton.

Richard Brember

• Charlotte Bernstein took part in the Great South Run and raised £220. • Ben Sillence took part in the Great South Run and raised £475. •

Gordon Brember sent in £530 raised from a raffle at Havant RFC Presidents Lunch.

Chris Tunnicliff took part in the Great South Run and raised £475.

Matt Whelan took part in the HellRunner Down South and raised £745:

“After Richard passed away from a heart condition at the young age of 32, his amazing wife, Hayley, started fundraising for CRY to raise awareness of avoidable deaths due to undiagnosed heart conditions. Hayley’s dedication to raising awareness compelled me to do something to help her achieve her fundraising target.

In Memory of

Ian Bowen

Maralyn Bowen sent in £142 raised at a recent screening.

In Memory of

Andrew Stratford Bowman

Nigel Bowman organised a St George’s Day party and raised £2,724.68 in memory of his son.

In Memory of

James Keith Bradshaw

Keith Bradshaw donated £100.

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“I decided to take part in HellRunner Down South 2018 to contribute to Hayley’s fundraising efforts for CRY. The event took place on Saturday 24th November at Longmoor Camp, home of the original HellRunner. A heady mixture of hills, and cold lakes, bogs of neck-deep mud and sand-sapping ascents over 10 plus miles. It’s tougher than Tough Mudder and grimmer than the Grim. “On the day, it was cold and very wet. I trained for about two months for the event but was very nervous when I lined up on the start line. The race started well and I clocked up the first five miles within an hour. “The course was treacherous and very wet underfoot, which meant you had to climb up the hills on your hands and knees and slide down the hills on your bum (I chose this technique after falling over about four times). “The second half of the race was very tough and, half a mile from the finish, my left leg went into spasm. However, thanks to three other runners who stopped to help me stretch it out, I got off my backside and got through the final half mile.

Issue 79 | May to August 2019


Our Fundraisers “Thinking of Rich and Hayley got me through to finish the race along with all of the fantastic support I got from friends and family that helped me smash my fundraising target of £500, raising £745. “CRY is an amazing charity and no family should have to go through losing a loved one like Hayley has.” Matt Whelan. •

Kate Hare took part in the London Landmarks Half Marathon 2019 and raised a total of £641.20:

“What can I say… such an amazing day! I can’t thank everyone who helped organise the event and all of the supporters enough. The cheers, claps and high fives really helped me to keep running, particularly as I was really nervous. “I wanted to take part in this challenge to raise awareness for CRY, an amazing charity which is supporting my friend Hayley and many others. Her husband, Richard Brember, passed away last year. Richard was a sporty, kind and passionate guy. I am lucky to be able to call him my friend. “The run was an amazing experience. I ran by myself but never felt alone. Everyone I saw who wore a CRY t-shirt congratulated and spurred me on. Luckily the sun was shining (thanks to Rich for sorting that) which was much better than the snow, rain and hail I had completed some training runs in. “At the end of the day it was Rich that got me through it. At the beginning of the year I could not run a mile, let alone 13! Each time I went out I thought about him, how his passing has affected so many people and the amazing work that CRY do to diagnose heart conditions and the support that they offer.

www.c-r-y.org.uk

“Currently I have raised almost £700 with Gift Aid included, but I am expecting this to go up. I’ve had a mini cake sale at work to raise further funds and sponsors. “Thank you to all the CRY team who were cheering and supporting, you are amazing. Thank you particularly to Rhianne who helped me to get a place when more spaces became available. “A truly amazing, unforgettable and emotional experience. Thank you to everyone involved.” Kate Hare. •

Hayley Brember raised £708.28 via her MuchLoved page:

“Elowen raised £48.90 at a cake sale at her Brownie unit – 2nd Drayton Brownies in November 2018. Mammy then very kindly took the unsold cakes into work to sell, bringing the total to £55.50! “Well done, Elowen!! Now over £100 raised for Rich’s fund with CRY!” “During the month of December, Sarah brought in treats for her office with the aim of raising money for Rich’s fund with CRY. Having tasted her excellent baking previously, I am not surprised to announce she raised £102.37 from her sales. Thank you, Sarah!”

In Memory of

Louise Brignull

Hannah Ward took part in the London Marathon 2019 and raised £1,904.50.

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Our Fundraisers In Memory of

In Memory of

Emma Broad

Leanne Brownhill

Surbiton Hockey Club held a charity day and raised £771.72.

The Compass public House held a prize draw and raised £125.

In Memory of

In Memory of

• Steve James at The Plough in Ratby organised a lottery game and raised £200.

Rosalind and Charles sent in £196 raised from a raffle at the Ballands Bowmen Memorial Shoot.

Jan and Colin Juneman held a coffee morning and raised £260. Family friend, Caroline MacPherson, also donated £300.

Greg Brookes

• Judy and Dennis sent in £200 raised from

The Plough lottery game.

In Memory of

Danny Brown

Richard Quin took part in the London Marathon 2019 and raised £345.

In Memory of

Katrina Brown

Alex Buckler

In Memory of

Jenny Bucknell

• Pauline and Eric Strahan sent in £150. • Hillary and Bill Durrant sent in a total of £4,548, including: £353 raised through Bill’s pole lathe demonstrations and Hillary’s organ and accordion playing; £2,500 from Mrs Barbara Gadd at the Yeovil Inner Wheel Club; £1,300 raised at Sherbourne Castle; and a further £395.

• Tiggy Brown took part in the London Marathon 2019 and raised £2,064.12. • CRY Patron Bill Neely took part in the London Marathon 2019 and raised £8,515.

“This is the £2,500 cheque we were handed at the final evening of her year as President of the Inner Wheel Club of Yeovil, by Mrs Barbara Gadd, who very kindly made CRY her charity to benefit from all her efforts with the support of all the ladies of the Yeovil Inner Wheel Club during her year in office. CRY Patron Bill Neely (right) with CRY Chief Executive Dr Steven Cox

28

“She really is a lovely lady with whom we have met on several occasions during her presidential year, and in fact

Issue 79 | May to August 2019


Our Fundraisers In Memory of

will meet again when we raise awareness and hopefully lots of funds at the Sherborne Castle Classic Car Show on 21st July.

Robert Burns

Doreen, Jimmy and Paul sent in £1,400 raised from a 5-a-side football match, tombola and cake stall.

“Several months ago we were asked by Barbara to attend with her at Sherborne Castle to accept a flashy giant cheque for CRY for the sum raised by selling tea and cakes by the Inner Wheel Ladies at the July 2018 Show. This was only for the photo shoot as Barbara then paid that cheque into the Inner Wheel Club kitty and that sum now forms part of the £2,500 cheque. “Barbara wants the money to be entirely used for screening young people and insisted that we put in memory of Dr Jenny Bucknell on the reverse as she is keen to support us in our endeavours for screening and wants to remain in touch to hear of our attendance at any future screenings we achieve in Jen’s memory. With the Inner Wheel cheque we are certainly well on our way to being able to book another screening day. “The photo was taken near Sutton Bingham Reservoir near Yeovil Somerset. Bill and I are in the photo with Barbara, the cheque and several ladies of the Committee of the Yeovil Inner Wheel Club.” Hillary and Bill.

In Memory of

Nathan Butler

• Craig Baker took part in the

Manchester Half Marathon and raised £530.

In Memory of

Constance May Burbidge

Mrs Reeve sent in £383 representing donations received in lieu of floral tributes in memory of her mother.

In Memory of

Jordan Burndred

• Nicola Burndred sent in a total of £970.49, including: £285 raised from the Leek Town Football Club’s final; screening donations totalling £185.49; and a further £500. •

Mr Reardon-Garlick sent in £250 raised at Penkhull Rocks.

Kidsgrove Athletic organised a fun day and raised £598.

In Memory of

Dorothy Burns

Dorothy bequeathed £7,256.38 to CRY in her will.

www.c-r-y.org.uk

• Angela Butler sent in £117 raised through collection boxes at The Wulstan Pub. •

Angela Butler sent in £850 raised from Lynn Lungrin’s spinathon:

“Lynn is a friend of mine and has always been interested in the work of CRY. She works in the cardiology hospital at our local hospital, so Lynn sadly sees the aftermath for the families who have suffered a young sudden cardiac death. “Lynn is also a spinning instructor and wanted to do a fundraiser for CRY and was accompanied by

29


Our Fundraisers friends in her spinning classes in the three-hour spinathon at Dimensions Leisure Centre on 6th April 2019. It was extremely hard work but a lot of fun and everyone said that it was very worthwhile to be working towards raising money for such a worthwhile charity. The money raised will go towards our next screening event in March 2020. A massive thank you to everyone involved.” Angela Butler. •

Angela Butler sent in £340, including: £250 from Staffordshire Yoga Fellowship; and £90 from Rebecca and Daniel Derrington’s wedding:

“My yoga teacher, Brenda Bramell, organised a ladies afternoon at her house when a lot of Brenda’s ‘yogi’ ladies attended and enjoyed a lovely afternoon. Unfortunately, the weather wasn’t kind and they had to stay indoors, but the ladies enjoyed the afternoon drinking tea and eating delicious homemade cakes and purchasing all of the donated jams, bookmarks, lavender bags, etc. The donations raised £200, and the Staffordshire Yoga Fellowship kindly donated another £50, making the total of £250.” Angela Butler. “The donation of £90 is from my niece and nephew-inlaw following their recent wedding. Rebecca and Daniel Derrington got married on August 3rd in Wales and they asked for £1 ‘bets’ to guess their first dance, and the total raised was £90. The wedding was a brilliant event. Most of the guests were glamping at the wedding site and the wedding was a fabulous day, evening and weekend, enjoyed by everyone.” Angela Butler.

In Memory of

Nicola Butterell

Jeremy Sandrook took part in the Ho Chi Minh to Angkor Wat Cycle and raised £2,330.

In Memory of

John Robert Byatt

Spencer Byatt took part in the London Marathon 2019 and raised £2,880.68.

In Memory of

Arabella Campbell

Suzan Dury sent in £320, including: £260 from the students and staff of Morley College of Fashion; and £60 from Hetty and friends.

30

In Memory of

Euan Campbell

Margaret Waddell sent in £1,000.

In Memory of

Jake Thomas Carney

Joseph Foley took part in the Fred Whitton Challenge and raised £895: “On Sunday 12th May, I completed the Fred Whitton Challenge, which is a 112 mile cycling event in the Lake District. Taking in all the famous passes such as Kirkstone, Honister, Newlands and Hardknott, there was over 12,000 feet of climbing on the day. I did this in memory of Jake Thomas Carney and raised over £800 for CRY. I finished ‘The Fred’ in 7 hours 56 minutes, after hitting a pothole and coming off after 50 miles which made a difficult task just a little bit more painful. But I got around eventually to an incredible welcome back at Grasmere. Thank you so much for all the generous donations and support! Special mention to Jessica for putting up with numerous things, but namely the hours of training, the hours of sleeping and having food on the table after every ride. And Anne and Dave for being absolute legends all weekend and putting up with my weird food requests... And not to forget, the cowbell!”

In Memory of

Andrew Carter

Marina Tomsett and Victoria Robins took part in the London Landmarks Half Marathon 2019 and raised a total of £800.

Issue 79 | May to August 2019


Our Fundraisers In Memory of

Katrina Christopher and Cheryl Christopher-Webber

After the football we had a raffle, a small auction and a live band, The Fever, which finished the afternoon off nicely with a BBQ.”

AA Law Ltd sent in £200.

In Memory of

Graham Lewis Cataldo-Davies

Keith Davies sent in £941 raised from climbing Mount Kilimanjaro.

In Memory of

Whitegate FC donated a total of £360 (above).

Katie Bridges sent in £177.94 from screening donations.

Ben Duffy took part in a Tough Mudder and raised £220 (right).

Apogee Wealth Management raised £156 in an Apogee staff bake off (right).

Nige Durose/The Plough Whitegate raised £1,153 from the annual Whitegate Way Charity Walk in 2017 (below), and £1,002.25 from the 2018 walk.

Kindertons Accident Management raised £2,322.71 across 2016, 2017 and 2018 from their annual memorial tournament (2018 winners pictured right).

Terry Chan

Vicky McMenigall donated £200.

Tammy Chan took part in the London Landmarks Half Marathon 2019 and raised a total of £1,040.

In Memory of

Pippa Chowne

Hannah Davies sent in £1,025 raised from Vanessa’s birthday fundraiser.

In Memory of

Michael Clarke

• The Briscoll family donated £300. • Team Mike and Whitegate FC hosted an annual memorial tournament in 2017 and raised £2,422:

“16 teams battled for the Mike Clarke Memorial Trophy. The winners were George & Dragon.

www.c-r-y.org.uk

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Our Fundraisers •

Barclays Payroll Matched Giving donated £1,000 in respect of a memorial football tournament organised by Simon Clarke.

Rowena Jukes took part in the London Marathon 2019 and raised £5,198.93 (right).

Enterprise Foundation donated £1,500 (right).

Team Mike and Whitegate FC hosted an annual memorial tournament in 2018 and raised £1,073.32:

“We held our third memorial tournament in memory of Mike on what would have been his 32nd birthday. Nearly 100 footballers battled for the Mike Clarke Memorial Trophy. It was a much drier day than the previous two years which made a much calmer atmosphere. “The football ran really smoothly as the boys were very keen to get on and off the pitch with determination to win their games! A few of the games had extra excitement by going into penalties. They were certainly taking the tournament very seriously!! “Our winners, Wrights Plasterers, managed to find enough energy to scoop a 5-0 win in the final, making them the

2018 winners of the Mike Clarke memorial trophy. “On top of the football we had a few stalls running to raise extra funds. The BBQ was definitely in demand, selling over 150 burgers and hotdogs! We had a small bar, cake stall, raffle, silent auction and tombola. “I couldn’t have done any of this without the help of my family, so a big thank you to them! “We managed to raise over £1,000 on the day to help towards the costs of funding further hearting screening. This tournament will continue for a long while yet as there really is no other way to remember Mike as football was his life!” Katie Bridges.

In Memory of

Callum Collins

David Shaw took part in the London Marathon 2019 and raised £1,635.

In Memory of

James Colman

Clare Perry sent in £305.

In Memory of

Natasha Coomaraswamy

Anita Dhariwal raised £1,962.80 via MuchLoved. Bill Dhariwal ran the Vitality London 10,000: “I ran the Vitality 10,000 on 27 May 2019 as a supporter of CRY. “My young niece, Natasha Kaur Coomeraswamy (nee Sandhu), died on 21 September 2018 at the age of 31 from a sudden cardiac episode. She was a medical doctor and just recently married. A lively spirit with boundless

32

Issue 79 | May to August 2019


Our Fundraisers energy, positivity and talent. She has been a heavy loss for our family and we are devastated, as all CRY families are, from the sudden loss of someone so precious. “I am not a natural runner and have never run in an organised race before. I wanted to do something positive in order to try and raise funds and awareness for CRY. I am a partner at Lawcomm Solicitors who are also raising funds for CRY as their sponsored charity. “The 10k race was hard work but a thoroughly enjoyable day, made great by the warmth and encouragement of all of the runners and supporters. I was particularly thankful to the CRY team who were strategically positioned at the 8k mark to cheer us on just as the legs were starting to ache and stiffen! “Natasha would have approved of me doing something. Her own spirit was about decisive action, having fun, helping others and getting things done. As a family, we want to raise funds for a screening day in the future in her beloved memory. “I am so proud of her, miss her and can’t believe that she has got me running at my age!”

In Memory of

Adam Cooper

Joy, Natalie, David and Mark took part in the Barcelona Half Marathon and raised £675.

In Memory of

Glenn Cornwall

Kay Sutton took part in the Cardiff Half Marathon and raised £650.

In Memory of

Dermot Costello

The Trust of St Benedict’s Ealing Abbey donated £800.

In Memory of

Graham Courtney

Mr Courtney sent in £500 raised through a Young At Heart Fundraiser at the Radcliffe Hotel in Paignton: “What a great day we had – in a lovely ballroom with sweeping views of Tor Bay, many helpers had been busy with displays of CRY literature, balloons and banners. A photo of our late son, Graham, gazed at us on the table at the entrance – his undetected heart condition 20 years ago inspired us to hold this event, to follow those held by other South Devon fundraisers for CRY. “A marvellous collection of raffle prizes were arranged, PA systems and a variety of musical equipment and lights were rigged, and our performers for the afternoon started to arrive to set up. Then, with our first members of our audience settling in their seats with their tasty lunches and Devon cream teas (jam on top!)… ‘Young At Heart’ by the Bluebells came ringing out from the speakers, and Brixham’s Martyn Paddon, compere and singer, launched the show. “Harrison, a drama student at South Devon College, followed with his powerful resonant tenor voice, treating us to swing era and show musicals, then we had Vic Baulton with his side-splitting comedy.

In Memory of

Daisy Cope

Susan Naylor sent in £160 raised from the sale of her plants.

www.c-r-y.org.uk

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Our Fundraisers “Ukuleles big and small were featured next, played en masse by the Rivera Ukulele Band featuring a variety of toe-tapping songs. As their last notes sounded, we could all hear the feverish sound of Brazilian rhythms getting nearer – and louder, and nearer, and louder… the Crooked Tempo Samba Band appeared through the ballroom doors in a splash of bright colours and broad grins!

added £50 to the total!! “This wonderful amount has been sent to CRY to help them continue in research, screening and support for those families affected by sudden cardiac death. Every week 12 young people (under the age of 35) die suddenly from a previously undiagnosed heart condition – 80% of these deaths will occur with no prior symptoms, which is why CRY believes proactive screening is so important. The charity’s pioneering screening programme has developed rapidly and is now testing over 30,000 young people every year.” Rick, Joyce, Andrew and Catherine Courtney.

In Memory of

Bruce Cousins

“Next it was time for Pendulum 5 to feature their mixture of hits from several decades of pop, country, ballads and instrumental numbers with Janet, Tony, Dave, Rick and Richard triggering the need to get up and dance.

• Jackie Cousins sent in £234 raised from a screening collection and collectibles stall. • Jackie Cousins sent in £132 raised from market stall sales. •

Jackie Cousins sent in £123 raised from Mary’s donated items following the death of her husband, Dean.

Jackie Cousins sent in £120 raised from her CRY collectible stall and a £50 donation collected at the funeral of Rose Tunnicliffe.

Alan and Jackie Cousins raised £1,203.50 from a sponsored walk marking the 10 year anniversary of Bruce’s death.

G4S and A E Spinks sent in £877.50 raised through sponsorship from a walk in memory of Bruce.

Pam Crow donated £100 following a presentation at the Mother’s Union at St Peter’s Church in Barnburgh.

“Twinflame, a new, exciting duo with a passion for entertaining, came on with their set of energetic, feel good songs and a compelling active presentation. Before a final set from Pendulum 5, it was time for our lovely audience to find out how their luck would be in our raffle draw of over £400 value of prizes so generously donated by: “Dartmouth Steam Railway and Riverboat Co.; Torbay Leisure Centre; Babbacombe Theatre; Hoopers of Torquay; Palace Theatre Paignton; B & Q Torquay; AMF Bowl; Paignton Zoo; Morrisons, Paignton; Otter Garden Centre; Waitrose, Torquay; Sound & Vision Paignton; Paignton Model Shop; Angie, Leanne, and Kim; Lynda, Louise and Sarah; Boots; Rick and Joyce; Dave Almond; Bays Brewery; Totnes Candle Studio; 100 Café Torquay; and Premier Meats Paignton. “Thank you so much, all of you. On the day we raised a terrific £486.60, made up to £500 by R.A. & P.A., and… there is a donate feature on Facebook which has so far

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Issue 79 | May to August 2019


Our Fundraisers In Memory of

Freya Cox

In Memory of

Hayley Crook

Mike Cox sent in £1,380.61 raised from the Witchert Choral Memorial Concert.

Deb Crook raised £1,200 through running her local charity shop.

William Hughes took part in Trek the Rockies and raised £3,080.

Mark Crook donated £250.

Paula Hawkins,Victoria Kirk, Karen Wilcox and Lauren Shukru took part in the London Landmarks Half Marathon 2019 and raised a total of £3,508.

Katherine Cook took part in the Oxford Half Marathon and raised £370.

Karen Saunders took part in the Brighton Marathon 2019 and raised £205.

Debra Hughes took part in the London Marathon 2019 and raised £2,291.

In Memory of

Andrew Mark Croxson

James Croxson forwarded a donation of £1,000 raised in lieu of Christmas cards sent by staff at Croxsons.

In Memory of

Simon Cullum

Judy Burton sent in £100 raised from a collection box.

In Memory of

Matthew Cragg

• Paul and Debbie Cragg sent in a further donation of £7,000 raised at Mattfest.

In Memory of

Stuart Cutler

• Graham Philip organised a golf day at the

Drift Golf Club and raised £8,000.

• Winterfield Golf Club donated £500. • Natalie sent in £795, raised in lieu of gifts for her 60th birthday, in memory of her son.

In Memory of

Matthew Cragg and Cameron Corrie

Pippa Wood took part in the London Landmarks Half Marathon 2019 and raised a total of £1,303.75.

In Memory of

Freya Rose Dalrymple

• Ingrid Dalrymple sent in £1,600 raised

through the second “Walk for Freya”.

In Memory of

Charlie Craig

• The Vale Arts Group donated £220.

CRY was nominated to receive the donation by member Wendy Smith.

• Gillian Clarke sent in £220 raised at the Vale Arts Group Exhibition.

www.c-r-y.org.uk

• Ingrid Dalrymple sent in a further £2,000 raised through the second “Walk for Freya”. •

The Kirkwall and District Darts League held their annual darts trophy presentation night at the Masonic Club and raised £820 by holding a raffle.

Papdale Stores donated £300.

35


Our Fundraisers In Memory of

Ben Daniels

• Emma Baker and her team took part in the Why Not Run event and raised £4,318.69.

Michael Coyle took part in the Stratford Half Marathon and raised £380.

Matthew McQuade took part in the Shakespeare Half Marathon and raised £560.

• Jackie Baker raised £269.20 from the Why Not Run event. •

Andrew Howie took part in the London Landmarks Half Marathon 2019 and raised a total of £841.20.

Merle Emberson took part in Why Not Run 5k 2014 and raised £110.

Peter Baylis took part in the London Marathon 2019 and raised £2,985.85.

Paul Daniels took part in the London Marathon 2019 and raised £3,632.62.

Adam Mendham took part in the London Marathon 2019 and raised £2,072.20.

Fiona Abiola-Musa took part in the London Marathon 2019 and raised £677.61.

In Memory of

Ashleigh Dawn Daniforth

Alisha porter sent in £110 raised from a church raffle.

In Memory of

Thomas Demaine

• Ann Demaine sent in £730.28 (including £22 from Images hairdressers, Saltash) raised from a raffle, the sale of fudge and a bucket collection at Redruth RFC. •

Andy and Ann sent in a further £706.72.

Ann Demaine forwarded donations totalling £422.44, including: £11.02 from Cycle4Tom collection pots; £311.02 from Val and Paul Henderson (25th wedding anniversary); £62.01 from Round the Island Race collection pots; £7.89 from collection pots at Landrake stores; and £30.50 from MAG 7 Run.

Julie Gregory took part in the London Marathon 2019 and raised £450.56.

Lesley Taphouse took part in the London Marathon 2019 and raised £504.50.

Emily, Kirsty, Lucy and Robbo took part in the Bath Half Marathon and raised £1,236.

In Memory of

In Memory of

Nottingham Law Society donated £2,925 raised at their annual awards dinner.

Robert Derricott sent in £119.

Kevin De Silva

James Derricott

In Memory of

In Memory of

Matthew Dewhirst

Michael Dean

• Lucienne Evans sent in £100.

Patricia Dean sent in £150.

• Sue and Chris Dewhirst forwarded a donation of £1,581 from Shrewsbury Swimming Club, Sue France, St. Martins W.I. and Budding Delights.

In Memory of

Conor Delaney

• Tom Reidy raised a further £2,421.62 from taking part in the Stratford Half Marathon and a charity football match.

36

Sue and Chris Dewhirst sent in £200 raised at Ryebrook Mini Raffle and £559 in donations from Wrekin screening.

Issue 79 | May to August 2019


Our Fundraisers •

Barclays Bank sent in a matched giving donation of £750.

The Rotary Club of Kendal donated £100.

Sue and Chris Dewhirst sent in donations totalling £1,514, including: £414 of screening donations; £100 from sales of Wemyss CRY pig; £500 from Wrekin College; and £500 from Shropshire Junior FC.

Kendal Athletic Club donated £100.

Jonathan Yoxall and Abby-Lee Ravenscroft took part in The National Three Peaks and raised £1,000.

Victoria Carney raised £1,304.91 from a cake sale and dress down day at her work place.

In Memory of

Bethany and Annie Williams took part in the London Landmarks Half Marathon 2019 and raised £1,152.34

Madeleine Best took part in the London Marathon 2019 and raised £2,198.39.

Deborah Dixon sent in screening donations totalling £299.33.

Deborah Dixon sent in £436.50 raised from a screening event at Daintry Hall Day Nursery.

Sam Stafford and the staff at Vale Royal Abbey Arms raised £3,310.

Deborah Dixon forwarded £170 from Assa Abloy.

Deborah Dixon forwarded donations totalling £340.33 raised from a recent screening at Sandbach RUFC.

Zac Williams donated £600.

Hackney & Leigh Ltd donated £250.

Junior Dian and Jack Maddams

In Memory of

Aaron Dixon

• Deborah Dixon sent in £1,000 from James Cropper PLC. • Deborah Dixon sent in donations totalling £210.99 raised from their recent screening weekend at Lostock Hall Academy. •

Deborah Dixon forwarded £325 raised through a Christmas raffle at Assa Abloy in Manchester.

Deborah Dixon forwarded £125 raised at the Matthew O’ Brien Fashion Show.

Emma Elston MBE sent in £5,000 on behalf of UK Container Maintenance Ltd.

Emma Elston MBE sent in £5,000 on behalf of Claim Easy Ltd.

Nicola Barkley sent in £744.

Deborah Dixon sent in £1,026.94 raised from a Tournament at Cuddington Football Club.

Liam McCabe took part in the London Marathon 2019 and raised £3,101.71.

Deborah Dixon sent in £159.32 raised from a collection at Stockport County Football Club.

Lee Tompkins took part in the London Marathon 2019 and raised £685.

Deborah Dixon sent in £1,788.

The JD Foundation donated a further £550.

Deborah Dixon sent in £260.

Russell Armer Limited and W G Burrow sent in £100.

www.c-r-y.org.uk

In Memory of

Adam Donnelly

• Julie Donnelly sent in donations totalling £178.22 raised from collection pots, including: £54.84 from Our Lady of the Rosary Social Club; and £123.38 from The George Staples Pub.

In Memory of

Harry Dubois

• Adam Duncan took part in the London Marathon 2019 and raised £1,601.80.

37


Our Fundraisers •

Christian took part in the London Marathon 2019 and raised £800.

Andrew took part in the London Marathon 2019 and raised £850.

Dawn Gratton donated £200 in appreciation of her son being screened.

In Memory of

Rory Embling

• Jen Simmonds raised a total of £859.02 from completing a sky dive. • Chris Embling sent in £100 raised from a DVD sale. •

Chris Embling sent in £433 raised at a University Challenge style quiz.

In Memory of

Chris and Anne sent in donations totalling £550 raised from the 2nd Ackworth Beer Fest.

Nigel and Helyn Dudley sent in £430 raised from a cricket match in memory of their son.

Chris and Anne sent in screening donations totalling £546.79.

Chris Embling forwarded £100 from Ackworth Parish Council.

Chris Embling sent in £315 in memory of Joan Ashwell.

Ackworth Junior Girls Football Club sent in £218 raised at a presentation evening.

The Kews and Rory’s Rovers held a football match and raised £451.

Anne Embling sent in £1,202 at the 2nd Ackworth Beer Fest.

In Memory of

Anne Embling sent in £127 raised from a raffle at a barbeque hosted by Wayne and Jo Mills.

Ann Farrell raised £240.45 from a cake sale at the Catholic Women’s League.

Carole and Paul Vogel hosted a Mad Hatters Tea Party and raised £200.

Ackworth Junior Football Club held a fun run and raised £500.

Grant Roberts of Overpower Leeds raised £220 from completing a 21 day healthy eating and exercise challenge.

Wayne Mills took part in the Pontefract Hospice Cyclethon and raised £240.

Anne Embling forwarded £173.37 donated to Rory’s fund by Petra and Andrew Tolley in memory of their son, Adam Jordan Lee Tolley.

Andy Coupland and friends raised £382 at his 50th birthday party.

Janis Lockett forwarded a donation of £2,049.19

Ed Dudley

In Memory of

Emily Rose Dunn

• Lynn Mitchell forwarded £100 from Compass Minerals UK Ltd. • Megan Wynne took part in the London Marathon 2019 and raised £2,636.75.

Callum Early

In Memory of

Annie Edwards

Robbie Winters sent in £400.

In Memory of

Gary Edwards

Hilary Edwards sent in £228.71.

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Issue 79 | May to August 2019


Our Fundraisers raised by Carleton High School. •

Anne Embling sent in £103 raised with the support of Wakefield Round Table.

In Memory of

Marian English

Dr E Austin sent in £430, representing donations received in lieu of floral tributes. Berkhamsted Lawn Tennis & Squash Rackets Club held a squash tournament and raised £195.

In Memory of

Sebastian English

• Chris Crosby at Haslemere RFC funded

the Haslemere Hare, which was painted and auctioned off to support CRY and raised £850. •

Beth Champion took part in the London Marathon 2019 and raised £2,606.20.

Donna Faulkner forwarded a donation of £179.72 from Flamstead Boot Camp:

“Each academic term Flamstead Boot Camp raise money for a chosen charity. We select charities which are significant to one or more of our boot camp members or friends within our local community.

In Memory of

“With this in mind, for summer term 2019 we chose CRY. This was to offer support to Donna, Stefan and their daughter Charlee following the loss of their son Harry, aged 18, to Sudden Adult Death Syndrome in 2013.

Dan and Nicola sent in £633.10, representing donations received in lieu of floral tributes in memory of their son.

“We are delighted to present the family with a cheque for £179.72 to go towards their continuing charitable work with CRY.” Gill Lilley.

Ryan Evans

In Memory of

Sean Farrell

John Bell took part in the Three Peaks Challenge and raised £575.

In Memory of

Harry Faulkner

• Berkhamsted Raiders Community Football Club sent in £1,500. • William Gilbey took part in the 1,706km

Challenge and raised £1,793.58. •

Jack Fowler took part in the 72 hour stream and raised £1,303.90.

• Nuffield Heath Fitness & Wellbeing Gym and

www.c-r-y.org.uk

In Memory of

Josh Fell

• Rich and Donna sent in a further £2,607.56. • Curtis Davies organised an online raffle and raised £1,897.89.

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Our Fundraisers In Memory of

In Memory of

Alan Christopher Ferne

Elise Fitzpatrick

Bates Solicitors forwarded a donation of £60,280.82 received from the estate of the late Mr Alan Ferne.

Sean Fitzpatrick took part in the London Marathon 2019 and raised £2,862.42.

In Memory of

Richard Field

In Memory of

Thomas Fleetwood

Amy Powell took part in the London Landmarks Half Marathon 2019 and raised a total of £1,235.

Chris Wright took part in the London Marathon 2019 and raised £2,540.13.

In Memory of

Therese Field

Tara Field organised a charity dance show and raised £320.

In Memory of

Ben Forsyth

• Louise Hood sent in £127.

In Memory of

• Musselburgh Congregational Church sent in £160 raised from the First Notes of Spring Concert.

Anthony Fitzgerald

• Marie Fitzgerald sent in £1,000. • The Danson Stables Pub sent in a

donation of £205. •

Noel Fitzgerald sent in £377 raised at the Tesco Welling AW Day.

Noel Fitzgerald, Kiley Ganderton, Joshua Jacobs, Kevin Watts, Lindsay Harris, Samuel Ashdown, Teddy Bevan, Paul Bryenton, Conor and Roisin Gray took part in the London Landmarks Half Marathon 2019 and raised a total of £8,603.10.

Hollie Jack took part in the New York Marathon and raised £2,297.97.

Blackfen School for Girls sent in £1,434.55.

Capital Group sent in a matched fund donation of £3,000 in relation to Habib Annous’ fundraising.

Noel and Alison sent in £104.

Robyn Smith took part in the London Marathon 2019 and raised £2,520.

Habib Annous sent in £1,000.

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Prudencial Financial Planning held their annual bike ride event and raised £14,769.60.

Rory Mellis took part in a 31 mile run and raised £460.

Steven Henderson donated £100.

Dillon Plahe sent in £273.40 raised from the collection pot at Finnegan’s Wake.

Margaret Strang donated £100 in memory of her grandson.

Francis Webb took part in the Strathpuffer 24 Hour Bike Ride and raised £2,276.79.

Keith and Margaret sent in £596.33 raised at a recent screening event.

Keith and Margaret sent in £1,017 raised from Keith’s birthday bash.

Keith Forsyth and the I-Cycles Team sent in £1,275 via Virgin Money Giving which was raised through taking part in the Kielder Chiller 24 Hour Mountain Bike Race.

Issue 79 | May to August 2019


Our Fundraisers In Memory of

Rachel Gabbitas

Sarah Gabbitas took part in the London Halloween Walk and raised £1,500.

Sarah Gabbitas sent in £100 raised from The Body Shop at Home raffles.

Abacus Upholstery Contracts Ltd sent in £500.

Linda and Geoff sent in £205 raised from car boot sales.

In Memory of

Matt Gore

• Catherine Roughley sent in £440 raised through an Easter raffle.

In Memory of

Jaimie Gault

• Patric-Luc Murphy at Birmingham Promoter sent in £224.29.

• Margaret Gault sent in £500 on behalf

of the Cogry Masonic Lodge.

• Margaret Gault forwarded a donation of

£500 from the Cogry Union Masonic Lodge.

Fiona Gore sent in £680 from the Arcades charity gig.

Steve Peters donated £100.

Jack Hall forwarded a donation of £1,200 raised at the Cookie Gig in Leicester City Centre.

In Memory of

Salena German

• Jackie German sent in £180 raised from a collection pot at her brother’s shop. • Jackie German sent in £193 from her brother and his wife, Richard and Kay.

In Memory of

Nicolas Grainger

Mark Hulbert took part in the London Marathon 2019 and raised £2,157.70.

In Memory of

In Memory of

Duncan Geoffrey Gittins

Adam Green

Mrs M Gittins sent in £296, representing donations received in lieu of floral tributes in memory of her husband.

Tom and Judy raised £1,275 through screening donations; Judy’s cards and homemade jams; and from Van Chaud (Mark and Sally) who provided coffee and crepes.

In Memory of

Alexander Goodman

In Memory of

Oliver Griffin

Rosemary and Peter organised a cream tea and raised £400.

In Memory of

Ashley Goodwin

• Linda and Geoffrey Goodwin sent in

£454 raised from an Easter raffle as well as car boot and eBay sales.

www.c-r-y.org.uk

Julie Camplin forwarded £594.86 from the Halliford School.

In Memory of

Kayleigh Rianne Griffiths

Leon and Wendy sent in £900 raised from the Maldon Golf Club Cala Honda Tour.

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Our Fundraisers •

Leon Griffiths sent in £1,000 raised through the Witham Rugby Club charity dinner and dance.

Leon Griffiths forwarded a donation of £1,481 from Maldon Golf Club.

Aimee forwarded a donation of £660 raised at a company quiz night at Wilkin & Sons Ltd.

Backer McKenzie donated £100.

Christopher West took part in the Cambridge Half Marathon and raised £565.

Christopher West took part in the Cambridge Half Marathon and raised £565.

In Memory of

Ben Hammond

• Sheralyn Hammond sent in £550. • The Savannah Charitable Trust sent in £280 raised from the London Beach Charity Weight Loss Challenge. •

The Tenterden Operatic and Dramatic Society sent in £130 raised from a bottle tombola at the Tenterden May Fayre.

Highworth Grammar School held cake sales, sponsored walks, non-uniform days and fancy dress events throughout the year and raised £1,900.21.

Ashlei O’Brien took part in the London Landmarks Half Marathon 2019 and raised £466.

Natalie Clark took part in the London Marathon 2019 and raised £2,514.

Brian Jenkins sent in £250.

Leon and Wendy sent in £535 raised from a bingo night at Witham Town Football Club.

Kirsten Lusher took part in the Tenterden 10k and raised £135.

A charity golf day was held at Maldon Golf Club where 48 players took part in a Texas scramble and pairs betterball competition which raised £1,731.

Phil Sweatman took part in the Brighton Marathon 2019 and the London Marathon 2019 and raised a total of £3,141.40:

Little Hand Nursery held a sponsored obstacle course race, cake sale and raffle and raised £953.

“I had a blast running around Brighton. The temperature was perfect for me. The first 20 miles went to plan and I was making good time. When we turned at the power station and ran back along the front the wind was ice cold and strong. I slowed rather but still managed to get a new marathon PB by a whopping 20 seconds!

In Memory of

Henry Grootveldt

Barclays Payroll sent in a matched giving donation of £776.50 in respect of a charity football match.

Andy Tyrie raised £776.50 from a football match.

In Memory of

Jack Hall

Mrs J Henke sent in £276, representing donations received in lieu of floral tributes in memory of her father.

In Memory of

Nial Hamilton

Avril Mayhew took part in the London Marathon 2019 and raised £3,240.

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Thanks for the opportunity to run Brighton, it was fab! Now bring on the London Marathon in a few days!” Phil Sweatman.

In Memory of

Alexander Hampshire

Mary and Chris sent in £100 in memory of their nephew.

Issue 79 | May to August 2019


Our Fundraisers In Memory of

Kyle Hancock

• Ian and Debbie Hancock forwarded a donation of £100 from Mr and Mrs Ian Greaves.

In Memory of

Graham Harrison

James Peacock took part in the London Marathon 2019 and raised £1,105.

• Hathersage Fire Station took part in the Sheffield Half Marathon and raised £1,700 in memory of Kyle and Richard Hill.

In Memory of

Mandy Beckett sent in £321 raised from the sale of tote bags at the Wool Monty Yarn Festival.

Harry Bright sent in £350.

Andrew Hart

In Memory of

Richard Harwood

Laura Greenall sent in £500 in respect of Ollie Ruddock’s Snowdon box jump event.

In Memory of

Megan Harding-Jones

• Matthew White took part in the London

Marathon 2019 and raised £2,860.

• Emily Gibbons and Emma took part in the Cambridge Colour Run and raised a total of £282.50. • Margaret Crowe raised £1,278 from a BBQ and raffle.

In Memory of

Thomas Hardman

• Greg Warburton sent in £175 raised through taking part in the TH96 Charity Challenge. • Mike Goldrick sent in £4,750 on behalf of Heywood Rotary Club.

In Memory of

Dorothy Harrison

Sandra Cooper sent in £550, representing donations received in lieu of floral tributes in memory of her mother, Dorothy, grandmother of Ian and Andrew Cooper.

www.c-r-y.org.uk

In Memory of

Jonathan Hayman

• Marion Hayman sent in £151 raised from collection boxes from establishments in the Sidmouth area. • Denise and Trevor Fudge sent in £2,000 raised at their 40th wedding anniversary:

“Denise and Trevor Fudge, proprietors of The Anchor Inn in Sidmouth, raised £2,000 for CRY whilst celebrating their ruby wedding anniversary. They held a private party but decided to charge a small amount for drinks with all proceeds going to CRY. The evening included food, a Motown Band, karaoke and dancing. The amount raised on the night came to £1,936 with Tony Philips’ parents adding an extra £64 to bring the total to £2,000. “The couple decided to support the charity CRY, in memory of Jon Hayman, who had worked at The Anchor Inn on various occasions, mostly during busy folk weeks. Six years ago, Jon died of a cardiac arrest at the age of 27.” Marion Hayman.

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Our Fundraisers In Memory of

Matthew Hesmondhalgh

• Paula Hesmondhalgh sent in donations totalling £420.20 raised from the annual Country Coffee Morning. • Anne Whittingham sent in £250 raised from the Hadrian’s Wall trekking challenge. •

Barry and Paula sent in donations totalling £685.34.

Nathan’s Wastesavers sent in a further donation of £174.

Gordon Bell sent in £180 raised from collections at church.

Barry and Paula sent in donations totalling £777.04.

Paula Hesmondhalgh sent in £1,100 from the Garstang Patchwork Quilters who chose CRY as their charity of the year.

Paula Hesmondhalgh sent in £30 from Mrs Ann Walmsley.

Paula Hesmondhalgh sent in £372.75 raised at the Garstang Scarecrow Festival.

Nathan’s Wastesavers sent in a further donation of £210.80.

Michael Coleran completed the Isle of Wight to Isle of Lewis Cycle and raised a further £3,876.63:

“‘I’ll do a bike ride and raise a few hundred quid for CRY, maybe a coast to coast over a couple of days, fully supported’. They were my words a couple of years ago whilst on a group fundraising walk for the Matthew Hesmondhalgh Memorial Fund at CRY. I didn’t do it that year as promised, and I didn’t do it last year either! Feeling guilty for breaking my promise I thought back to a ride I did six years ago – not a coast to coast but an Isle to Isle ride, the Isle of Wight to the Isle of Lewis, 900 miles, lots of hills, 14 days, and on my own, carrying all my own stuff! “So, on April 1st (yes, I know, April Fool’s Day) I found myself on the train south from Lancaster to arrive on the

44

Isle of Wight by mid-afternoon, enough time to be given a guided tour around Parkhurst Prison (I worked there in the 1970s and ‘80s), before being given a send-off by the Governor and some of the staff. “The weather was warm and sunny that first day on the Island, but of course it couldn’t last! A cool, rainy day riding through the New Forest and up into Wiltshire was followed by a frosty, toe and finger numbing day up to Ledbury in Herefordshire. All quite bearable so far, until the following morning and the leg from Ledbury to Shrewsbury – it snowed all day! Wet, slushy snow! Wet, cold, and under-dressed for the conditions, I did worry about hypothermia at one stage! Sticking to the gritted, and busy A49 was the only safe (ish) option, but it did get me to my overnight stop at Shrewsbury. After that utterly miserable day things improved drastically - I didn’t get wet again through the rest of the ride and, for the most part, I had clear blue skies, albeit with a constant cold wind. “All went to plan as I continued northwards, through the Lake District (Kirkstone Pass at the end of a 62-mile day was testing!) and up into Scotland. The Isle of Arran was stunning (but cruel with a huge hill right at the end of a 65-mile day), as was the ride from there up to Oban with a brief foray to follow the beautiful Crinan Canal. “After a night at Oban Youth Hostel, the plan was to get the 7am ferry from Oban to Lochboisdale in the Outer Hebrides but, to my dismay, I was informed that ferry no longer runs in the summer season. Other alternatives were not viable options so my ‘Plan B’ came into operation, a plan I had made in case of bad weather/ cancelled ferries. “Plan B involved cycling the Caledonia Cycle way up to my final destination, Inverness, via The Great Glen. This turned out to be the most enjoyable couple of days of the whole trip, with superb scenery in brilliant sunshine, ridden mainly on well surfaced cycle tracks, forest roads and quiet B roads. The route change meant my mileage would only be just over 800, so I did a ride from Inverness on my ‘rest day’. The final mileage was 856 miles. “I had great moral support via social media all the way and some cycling friends joined me on sections close to home halfway through the ride. To my delight, the fundraising exceeded all my expectations. I originally set my target at £1,000 but finally had the great pleasure of handing over a cheque for £4,864, enough to screen 97 young people!

Issue 79 | May to August 2019


Our Fundraisers In Memory of

Laura Hillier

Tony and Joan Hillier sent in donations totalling £245.10 raised at their recent screening day.

In Memory of “One thing that was uppermost in my mind throughout the ride was my late brother, Keith. Way back in 1981, Keith died suddenly from an undiagnosed congenital heart defect – he was 37 years old, having lived a normal, active life. There was no CRY in those days, but if there had been, there is a chance his problem could have been detected and cured – something we will never know. “One thing we do know is CRY is now saving young lives and saving families the heartache of losing loved ones. Keep up the great work!”

Lewin Hodgins

• Gary Downs at Practical Business Improvements Ltd donated £250. • Alison Shaw sent in £100. •

Gerard Grattan sent in £100.

In Memory of

Gary Horne

In Memory of

James Hick

Sarah Rayner held a charity football match at The Mirfield Free Grammar and raised £351.55.

Melissa Horne sent in £280, representing donations received in lieu of floral tributes in memory of her dad.

In Memory of

Stewart Howard

In Memory of

Ralph Edward Hicks

Jane Howard sent in £1,600 raised at an Easter Tesco car boot sale.

Simon Thorn sent in £175 on the occasion of the marriage of Max Habib and Angela Huang in Winchester College Chapel.

In Memory of In Memory of

Jessica Katie Higgins

Angela MacDonald sent in £500, representing donations received in lieu of floral tributes in memory of her daughter.

Liana Hoyland

Helena Robertson took part in the London Marathon 2019 and raised £1,030.

In Memory of In Memory of

Richard Hill

Laura and Patrick Hill sent £669 raised at their wedding.

www.c-r-y.org.uk

Alex Hubbard and Harry Faulkner

Keith Preedy took part in the London Marathon 2019 and raised £328.50.

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Our Fundraisers In Memory of

Paul Hubbard

Wincanton Screwfix donated £472.55.

In Memory of

Daniel Hughes

• David Hughes sent in £3,041.80, including: £2,428.80 in donations; and £613 from Ken Jervis Ltd. • Craig Mason took part in the London Marathon 2019 and raised £1,900. •

BAE Systems sent in £5,000 in respect of a screening event.

James Burrows sent in £3,897.67.

Miranda Cooke, Sam Clewlow, Nat Wallace, Tarlie Davies, Tracy Armstrong took part in a netball tournament and raised £2,242:

“On Sunday 23rd June, we held a charity netball tournament at Holmes Chapel Leisure Centre in memory of Daniel Hughes. “The event was a huge success and we managed to raised £2,242 by team entries, raffle and cake sales. We were also able to get further £1,000 match funding through one of the organisers’ workplace, making the grand total raised to £3,242.

the tournament. “A special thanks to the following people who helped to organise the event: Sam Clewlow, Nat Wallace, Miranda Cooke, Liz Shaw, Tarlie Davies and Tracy Armstrong. An extra thanks goes to Dan’s sister, Kim, who came along on the day and presented the top 3 team with medals & trophies. “All funds raised have been donated to CRY.” Miranda Cooke.

In Memory of

Matthew Hughes

• Fay and Paul sent in £420, representing donations received in lieu of floral tributes in memory of Frances Griffiths and her grandson, Matthew. •

Daryl Toogood took part in the London Marathon 2019 and raised £2,055.

In Memory of

Charlie Ibrahimi

Catherine Ibrahimi sent in £3,000 raised at a charity Ceilidh.

Angus Galton took part in the Oxford Half Marathon and raised £806.

In Memory of

Michael Ince

“There were 17 teams that entered the tournament and it took six organisers to pull the event together. “Despite the weather warning for the day (as the event took place on outdoor courts), the rain held off and everyone from players to spectators thoroughly enjoyed

46

Katie Alcock sent in a total of £3,939 raised via Wonderful.org.

Katie Alcock at Charles Stanley sent in £3,900 in respect of their contribution to CRY as their Charity of the Year:

“We selected CRY as Charles Stanley’s Charity of the Year because of the story of one of our colleagues, Katie

Issue 79 | May to August 2019


Our Fundraisers Alcock, who sadly lost a close friend, Michael Ince, in January to sudden cardiac death. “We are delighted to have been able to raise a good deal of money for CRY already, and we are excitedly planning more activities to raise a lot more throughout the rest of the year. “Fundraising activities so far have included sweepstakes on sporting events, raffles for Easter eggs, and auctions for event tickets, such as London shows. We have optional dress down days on Fridays, and have asked those who dress down to pay a £1 donation for each Friday of the year all in one go to boost our funds. Perhaps the most dramatic event so far has been our waxing day, where a few brave souls from our Birmingham office volunteered to have their legs waxed in exchange for sponsorship money from their colleagues. “We are looking forward to raising a lot more for this great cause; in memory of Michael, in support of the young family he leaves behind, and for all those who benefit from the vital work that CRY carries out.”

In Memory of

Ariana Jahinger

Jennifer Cambell took part in the London Landmarks Half Marathon 2019 and raised £1,785.41.

Sarah Ramsey took part in the London Landmarks Half Marathon 2019 and raised £1,525.25:

“My friend Jen and I ran in memory of Ariana who would have turned six on 5th April. She went to school with our sons and she passed away suddenly in November. It was such a shock to us all and we felt we had to do something, so set ourselves this challenge. Jen has never run before and I haven’t in 12 years (since then I’ve had

www.c-r-y.org.uk

two knee ops, three slipped discs and two children). We both work full time so found it hard to fit in training, but my dog accompanied us on each training run and we did it in 2hrs 13mins and thought about Ari, Rouge and Tariq every step of the way. “Thank you for all the support around the course and for everything you do to help support families clinically and emotionally who are affected by heart problems. We are now planning our next challenge!” Sarah Ramsey.

In Memory of

Sarah James

Kyle Osborne donated £165.

In Memory of

Nicholas Jarram

Grazynka Jarram sent in £360, representing donation received in lieu of floral tributes in memory of Nicholas’s father.

In Memory of

Beryl Jenkins

Michelle Jenkins donated £174.55 in memory of her mother.

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Our Fundraisers In Memory of

Nathan Jennings

David forwarded a donation of £2,000 bequeathed by Jenny Jennings in her will in memory of her son.

In Memory of

Lucy Adena Jessop

Ollie Waghorn hosted a ‘90s Ibiza night and raised £960.

In Memory of

Damien Jewell

David Jewell sent in donations totalling £550 raised from the North Tyneside Seaside Walk, including: £250 from Ian Smith of PC Investment; £250 from Lowes; and £50 from Jim Routledge.

In Memory of

In Memory of

Darren Joliny

Maria Joliny sent in £130 raised by friends and family through a ‘Football Extravaganza’.

In Memory of

Ethan Jones

Keith Weston sent in a total of £828.25, including: £665 raised from his talks; and £163.25 raised from a collection pot.

In Memory of

Francis Jones

Gail Jones donated £100 in memory of her husband.

In Memory of

Ben Kanfiszer

Essity Dunstable Charity Committee sent in £250 in relation to Jamie Drew’s boxing event.

Christopher Johns

• Laura Johns sent in £2,105 raised through a charity football match and fun day. • Gareth Hughes took part in the London

Marathon 2019 and raised £2,191.

In Memory of

James Johnson

Jan Kemeling sent in £100.

In Memory of

Lisa Johnson

• Carl and Eunice sent in £100 in remembrance of Lisa’s birthday. • Richard Hartmann sent in £600 from the sale of his sister Heather’s books.

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In Memory of

Eleanor Keeler

• Joe Acton took part in the London Marathon 2019 and raised £1,852.40. • Jenny Davis took part in the London Marathon 2019 and raised £1,277. • Annette Keeler sent in £11,980 raised from a ball:

“I thought that I would write a definitive account of Eleanor’s ball for CRY that was held at York Racecourse on May 4th, in the month Eleanor would have been 30 (and she was a Star Wars fan, so the date was pertinent!). “In 2017 whilst participating in the Durham Walk, I mentioned to Chris, my husband, that Eleanor would have been dead 10 years on 2nd October 2019 and we ought to remember her in a positive way, so we agreed that we should organise a ball in her memory and for CRY to finance screening events. So it came to be! “The event was attended by 259 people, with people coming from Bulgaria, Australia and all parts of Britain

Issue 79 | May to August 2019


Our Fundraisers specially to support us and the good cause. “The evening began with the welcoming drinks and the ladies were presented with a box of chocolates, donated by a sponsor. Guests then had time to view the silent auction lots that were available to bid for. These included a week in a Spanish villa, four ball golf experiences, a bottle of rare whisky, a bottle of locally produced gin that had been specially inscribed for the event, an original piece of art work, and much more. There was also a tombola for the smaller items that had been donated. During the meal we held an auction for the more expensive items which included the owning of a racehorse for the day for four people, a Mulberry bag, tickets to see Rod Stewart and the use of a Spanish villa during high season. “We were entertained by a live band and a DJ who offered his services for nothing as he believed it to be for such a good cause. “A photo of Eleanor was projected onto a wall and the televisions displayed information about CRY and our ball sponsors. This occurred while we ate and we were entertained by our wonderful Phil Friar, a ‘Frank Sinatra’ lookalike and impressionist. “Near the end of the evening, a raffle was held for just a few highly priced items and my niece was thrilled to win the Tiffany bracelet. All these prizes were donated and we are very grateful to the companies and people who gave them. “The evening ended at 1:00 and there were still lots of guests dancing the night away, enjoying themselves and asking when we were going to hold another event… the answer is never again! The ball was a great success,

www.c-r-y.org.uk

raising over £12,000 on the night which was a wonderful result and a fitting memorial to a wonderful daughter, sister, auntie, cousin, granddaughter and friend. “Two friends this year also ran the London Marathon for CRY in Eleanor’s name and raised over £3,500 between them – again, a wonderful result and money towards screening. “Our fundraising efforts have been a truly positive way to progress through what may have been a difficult year. Thank you to everyone for making the events so successful.”

In Memory of

Claire Keen

Mr M Jeffcoat sent in £254.40, representing donations received in lieu of floral tributes in memory of his father, Arthur George Jeffcoat.

In Memory of

Andy Kenny

Eleanor Mather, Lucy Boobyer, Pheobe Eaton, Georgia O’Connor, Amber Coleman, Lucy Portsmouth, Emma Strachan and Lucy Clowes took part in the London Landmarks Half Marathon 2019 and raised a total of £4,410.

In Memory of

Jenny Kerwood

• Michael Hennan took part in the London Marathon 2019 and raised £3,625.23. • Ross Kerwood took part in the London Marathon 2019 and raised £3,269.04.

In Memory of

Harry King

• Andrew and Samantha King sent in a donation of £220 raised from a collection box and the sale of wristbands. • Paul Moss donated £180.

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Our Fundraisers •

Seniz Suleyman sent in £130 raised from the sale of CD’s at Harry’s Big Heart event.

Andrew and Samantha sent in £1,140 raised from Harry’s Big Heart event:

“We held a fundraising event to raise awareness and donations for CRY. This was to celebrate and honour our son, Harry, who we love and miss so much.

In Memory of

Adam Knapp

Jessica Knapp sent in £4,033 raised from a memorial golf day.

In Memory of

Kathleen Knowles and Dean Knowles

Mr A Knowles sent in £150 in memory of his wife, Kathleen, and son, Dean.

In Memory of

Jannik Lam

• Burston Garden Centre sent in £241.

“The event comprised of an hour of line dancing to get the party started, then the feel good ukulele band that travelled all the way from sunny Margate to join us. Seniz Suleyman did two solo songs from a youth group from Edmonton church. Then we finished with a disco. We held a raffle and lots of people from our local community gave gifts, including our local hairdresser and florist and a firework company. The co-op donated a hamper and wine and Gregg’s donated doughnuts. The support we received from family, friends and neighbours really made for a good night and started me on a new journey. We raised over £1,370.” Samantha King.

In Memory of

Sophie Louise Kirkland

Natasha and Liam took part in the Great Manchester Run and raised £720.

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• Birte and Lam sent in screening donations totalling £205. •

Birte and Lam sent in £123.14 raised from a recent screening event.

In Memory of

Adam and Jenny Lambert

• Linda Wilks sent in £150 raised from her CD ‘Songs From My Heart’. • Emma Sayell took part in the London Marathon 2019 and raised £3,020.

In Memory of

Andrew Lancastle

Anne Lancastle and Jamie McMillan took part in the London Landmarks Half Marathon 2019 and raised £836.

In Memory of

Carli Lansley

• Jon Wood sent in £132. • Karl Lansley sent in £24,200, including:

Issue 79 | May to August 2019


Our Fundraisers £5,000 to hold a screening day; £15,000 to fund three screening days in 2020; and a further £4,200. “Between 1991-2006 Kingston Athletic was a member of Southend Sunday Football League. For the entire duration of its existence, the club was managed by Karl Lansley. Every year since 2006, the players from Kingston have reunited for an annual match. As of 2018, this annual reunion match will now be a charity fundraising event for the foundation. “On 26th August 2018, 29 ex-players from Kingston played in the reunion match, held at Len Forge Centre. Despite the absolutely atrocious weather conditions, everyone enjoyed the match and an incredible £475 was raised for the foundation. “The final score was 8-7 to the claret and blues. The squads (in full): “Claret/blues – Peter Morgan, Matt Lansley, Lee Lansley, Aaron Rastall, Marc Lacey, Adam Keene, Darren Graham, Tony Rastall, Ian Rodd, Dan Paveley, Danny Tree, Lee Asquith, Gareth Brown, Roger Morgan, James Roach. “Green/golds – Chris Tyrrell, Mark Naulls, Kevin Hilton, Karl Lansley, Danny Gosnell, Ryan King, Jodi King, Colin Sargent, Pete Jelley, Paul Enfield, Simon Brown, Ian Lindsay, Kim Polley, Jason Marchant.

“We were delighted that Jason Demetriou popped along on the day to support our cause. Jason is my daughter Jessica’s favourite player and I spoke to him back in May to explain our tragic situation and what we are hoping to achieve in Carli’s memory. Jason could not have been keener to help us. “The photo above is of Jason with my daughter, Jessica (who has the CRY logo on her shirt), and my son, Ethan (who has our charity’s logo on his shirt). The other photo (left) is a combined team photo of all the players on the day, plus Jason. “In the last few months, we have developed an exceptionally strong link with Southend United Football Club – so much so that our first screening in June 2019 will be held at their ground. They are so keen to help where they can. They understand the importance of what we and CRY are trying to achieve in making screening widely available.” Karl Lansley.

In Memory of

Kris Ledgard

• Colin Berry took part in the London Marathon 2019 and raised £2,420.

“There was even a 15-minute cameo appearance at the end by Carli’s son, Ethan (aged eight), who also scored two goals! “Our huge thanks go to: Mark, Jade and everyone at the Len Forge Centre for all their help in organising the day; Guy Pell-Ilderton, the secretary of Southend Sunday League, who officiated the match for free; Vanessa Conroy, from PrincessParties4u, who kept the kids entertained for nearly three hours; and Jason Demetriou, Southend United defender, who came along to support our fundraising day.

www.c-r-y.org.uk

• Peter Ledgard sent in £160.63. •

Tom Ledgard took part in the London Marathon 2019 and raised £2,222.86.

In Memory of

Barrie Lee

Stacey Walker took part in a charity boxing show and raised £3,250.

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Our Fundraisers In Memory of

Miriam Kate Lee

Nicola Lee held a Kettering Fun Day and raised £635.

In Memory of

James Leith

Mrs Iddon sent in £509.10, representing donations received in lieu of floral tributes in memory of her father.

In Memory of

In Memory of

Joseph Leyland

Jenny Legg

Shoe Zone Trust donated £1,000.

HSBC sent in a matched fund donation of £1,000 in respect of Chris Legg’s fundraising.

In Memory of

In Memory of

Alison Leigh sent in £470 raised through sponsorship from climbing Mount Snowdon.

Mr and Mrs Pooley sent in £130.

Jonathan Leigh

Kira Louise Lloyd

In Memory of

Jamie Loncaster

• Falcon Contract Flooring Ltd sent in £100. • Patrick O’Connor sent in £250 raised with the support of colleagues from Design Build International at the PDR Construction Day. •

Graham Loncaster sent in £240 raised at a piano recital.

Dr Henk de Vries sent in £100.15 raised at a piano recital:

“Although the concert did not have the Beatle mania one might hope for, the people who did attend enjoyed the concert. The Schumann was so fitting to Jamie, as the music is a reflection on parenthood by Robert Schumann. The Steinway had a beautiful tone for this ever so fragile music. “It was followed by Brahms’ 2nd rhapsody, having a musical as well as personal relation to the Clare and Robert Schumann but in a more brisk rhythm and more resonant tone. “The Beethoven’s late Sonata was written when Beethoven lost his anger with struggle and subsequent feelings of victory, as in the 5th Symphony, for example. But at this stage he reaches out to the audience and is much less formative in his structure. The music just flows

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Issue 79 | May to August 2019


Our Fundraisers In Memory of

from one episode into another to come back to its original theme. All late Beethoven sonatas remain one of the highlights of piano literature because of its transcendent nature.

Martyn Luckett

Ross Bowden sent in £200 via Virgin Money Giving which was raised through a charity boxing match.

“Faure, much less known as a piano composer, has written quite a lot for the piano nevertheless. This piece was performed by Vladimir Horovitz in the ‘70s, when I had my very first visit to the UK. The 13th nocturne is full of sorrow but also of contemplation, anger with sadness, but ultimately with a beautiful resolution where its opening theme gets repeated in a different form, to come back where he started. “It was an immense joy and fantastic learning experience to have this performed. It was also a fitting memory to Jamie.” Henk de Vries.

In Memory of

Sarah Long

Alice Long sent in £148.93 raised from the sale of an Xbox and a car boot sale: “The leaflets went quite fast – a few people who owned shops wanted to display them in their shop. One man had goose bumps seeing that we’re supporting CRY because his pupil passed away due to a heart problem. “It went really well. We raised £130 and then my mum collected a pot which had £20 in it. Every little helps. We also raised a lot of awareness.”

In Memory of

Alan Lumley

• DLA Piper UK LLP sent in £3,012.70. • Sharon Gilligan sent in £277.50 raised from the Great North Swim. •

Lynne Groves sent in £100 raised through walking the Ullswater Way Walk.

Jenny Lumley sent in £200 raised from a rugby sevens tournament:

“The Alan Lumley Cup is a touch rugby tournament held at Alan’s school, Barnard Castle School. The cup was originally set up by Alan’s school friends in order to have an annual event to celebrate and remember Alan. The event is now organised by the school alongside myself and my mum, Jenny Lumley. We have a girls team (with a few token males) called Al’s Gals and for the first time this year we didn’t finish last. We came fourth out of six teams. The winners of the Alan Lumley Cup this year were Northallerton Rugby Club. We don’t put a massive emphasis on fundraising for this event but we always ask people to donate to CRY if they would like to. I think we raised around £200 from the last event but most of all it is just a perfect way to celebrate Alan, playing a sport he loved at a school he loved. The cup was held on Saturday 29th June 2019.” Julia Lumley.

In Memory of

Tom Lovatt

Lucy Goodwin sent in £4,164.19.

www.c-r-y.org.uk

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Our Fundraisers In Memory of

In Memory of

Deirdre Lynch

Balinder Mann

Kate Lynch and Sorcha and Cliodhna Ni Riain took part in the London Landmarks Half Marathon 2019 and raised a total of £2,835.

• Satbinder Mann donated £100. • Narinder and Jarinder Mann sent in £311.68 via JustGiving, making a total of £1,696.68 raised through completing the Just Walk event.

In Memory of

Gareth MacDonald

In Memory of

Leon Ashley Manners

Neil O’Sullivan took part in the London Marathon 2019 and raised £2,080.

Julie Hatton sent in £283 raised through a tombola as well as stock from MS Jewels Sentimental Gifts.

In Memory of

Andrew Macleod

In Memory of

James Markham

• Donna Maciver, Hannah Nicolson,

Hannah Bamsey, Rosie Sullivan, Dana Maciver and Erin Macdonald participated in the Youth and Philanthropy Initiative at The Nicolson Institute and raised £576.50. •

Mairi Macsween at the Nicolson Institute Parent Council sent in £250.

Janice Clark sent in £787 raised at the Western Isles 50th Reunion.

Catherine Larcombe donated £125 in memory of her nephew.

Dee Hadaway took part in the London Marathon 2019 and raised £4,722.22.

In Memory of

Lewis Marsh

• David Arnold donated £1,250. • Gill Weston donated £10,000. • Gwen Barrett sent in £178 raised at Wokingham Tennis Club.

In Memory of

Tina Lynne MacMillan

Frank and Cara sent in £536 representing donations received in lieu of flowers in memory of Frank’s wife and Cara’s mum, Tina.

Nicholas Metcalfe took part in the London Marathon 2019 and raised £1,925.

In Memory of

John Marshall

In Memory of

Jack Maddams

James McBride took part in the London Marathon 2019 and raised £1,363.20.

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• Edge Hill Water CocaCola raised £2,958. • Maureen Marshall sent in £250 raised from collection boxes at Edge Hill University.

Issue 79 | May to August 2019


Our Fundraisers In Memory of

Dean Mason

Jack Mason took part in the Daiathlon and raised £505.

In Memory of

In Memory of

Ian McDonald

Stephen and team took part in a 10 mile walk and raised £205.

Chelsea Keen completed a sykdive and raised £155.

Emma Jones completed a skydive and raised £490.

Pete McAvoy In Memory of

• The Wood Foundation sent in £3,000.

Paul and Richard McGlynn

• Fiona Robertson sent in

Patsy Gilthorpe sent in £300 raised from craft fairs in memory of her brother, Paul, and dad, Richard.

£260.51 raised at the Perth Grammar School annual prize giving ceremony. •

Darren Gray sent in £140 raised from a dress down day.

Darren Gray took part in the London Marathon 2019 and raised £3,138.21.

Anne McAvoy sent in £2,057 raised by the Perth & Kinross Council Social Work Department.

In Memory of

Philip McGrath

Charlotte McGrath donated £500 in memory of her husband.

In Memory of

Stephanie McLean

Tom Machell sent in £200 raised from three preview shows.

In Memory of

Simon McNamara

Barratt Homes sent in a matched fund donation of £1,475 in relation to Mike and Freda’s sponsored walk.

Katherine McNamara took part in the London Marathon 2019 and raised £2,297.

In Memory of

Paul McCann

Richard McCann took part in the London Marathon 2019 and raised £2,183.20.

In Memory of

Caitlin McCart

Beth Coghlan took part in The Ironman Challenge and raised £3,997.47.

www.c-r-y.org.uk

In Memory of

Liam Meadows

Natalie Butler donated £110.

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Our Fundraisers In Memory of

Josh Merrick

• Jenny and Madi took part in the BUPA Great Manchester Run 2014 and raised £428. • Luca Simi sent in £110 raised through taking part in the Bupa Junior Boys Race in 2014.

In Memory of

Richard Merriman

• Michaela Merriman sold cakes at the Easter cake and craft sale at her workplace and raised £728.

“I would like to say a massive thank you to my daughter for all her help with the baking that took us all week and for the beautiful hand painted glass she did. “Thank you so much to everyone else who donated cakes and crafts to our sale! It means a lot. I am humbled with all the support we received. Thank you.” Nicola Merriman. •

Nicola Merriman raised £1,340 from the Nordic sponsored walk:

“On 1st June 2019, we did a charity Nordic walk in memory of our son, Richard, for CRY. My lovely friend Nicky Sanders, who is a Nordic walk instructor, helped us organise it. We walked 10 miles all around the downs and all had a brilliant day. The weather was beautiful!! We all had lunch after our walk at a place called Hunters Lodge – they looked after us very well.

• Nicola and Paul Merriman organised an Easter cake and craft sale and raised £728:

“On the 20th April we had an Easter cake and craft sale in aid of CRY, in memory of our son, Richard. “We had a brilliant afternoon! Lots of delicious, yummy cakes that my family, friends and work colleagues had donated! And beautiful crafty bits too. “It was a beautiful sunny day, so people who wanted to stay could sit in the garden with a piece of cake and a cuppa, and of course a glass of wine or two! We also had a raffle – lots of great prizes! We raised £700 at our sale which is fab, especially as I managed to do all this in our small home.

“I would like to thank Nicky Sanders for organising the walk; everyone who participated; everyone who very kindly sponsored us; and all our marshals who helped to keep us hydrated and spurred us all on. “You are all amazing to help us raise this amount of money. It means a lot to have so much love and support. Thank You.” Nicola and Paul Merriman.

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Issue 79 | May to August 2019


Our Fundraisers In Memory of

In Memory of

John Millar

Jonathan Morgan

• Kirsty Macmillan donated £418.

Jamie Whitfield and his colleagues at Santander Complaints Operations in Teeside donated £250.

• Caroline Beaton completed a Tough Mudder and raised £100.

In Memory of

In Memory of

Levon Morland

Rosie Mitchell

• The Morley family sent in £266 representing donations in memory of Elsie Morley, who was a great supporter of CRY.

• Adam Burrows took part in the London

Marathon 2019 and raised £3,783.

• Andrew Mitchell took part in the London Marathon 2019 and raised £3,783.

• The Hare and Hounds Golf Society, Riccall, sent in £255.

In Memory of

Owen Morris

• Judith Miller sent in £1,146 raised through a cake sale at Owen’s primary school. • Lisa Bailey donated £1,625.

In Memory of

Sam Moodey

Hywel Rogers and Team took part in the John O’Groats to Lands End Cycle and raised £5,904.

Nick, Emily and Helen took part in Owen’s Ride and raised £578.

Helen Morris took part in Owen’s Ride and raised £2,221.

Stephen Averill took part in Owen’s Ride and raised £445.

Anthony Davies took part in Owen’s Ride and raised £1,040.

Bev Sulston took part in Owen’s Ride and raised £330:

• Melanie Coates donated £100. • Ellie Walker sent in £977.93 raised from the Warwick Alumni Big Band event. •

Anushka Joshi sent in £100.

In Memory of

James Moorfoot

Nichola Thompson and Team HSLC took part in the Hornsea 1/3 Marathon and raised £430.

www.c-r-y.org.uk

“Bev Sulston and I took part in a charity bike ride around

57


Our Fundraisers In Memory of

Pardeep Nagra

• Resham and Dalbag sent in screening

donations totalling £2,441.25.

• Resham and Dalbag sent in £604.11 raised from a grand ball. • Kat Senter of the Blakemore Foundation sent in £100.

In Memory of

Lizzie Nee

Normandy in May. We successfully completed the bike ride after 300 very gruelling and hilly kilometres. Each of the 36 riders were able to choose their own charity and we chose to ride in Owen’s memory for CRY.

• Robert Chapman took part in the New Forest Half Marathon and raised £360. • Catherine Nee sent in £636.60, including: £135.20 raised at her street party by Rosie and Tim Lambert who organised a sale of costume jewellery; and £501.40 from organising the Gaddum Road street party and jewellery sale and raised.

“The sponsors of the bike ride will match fund the first £500 raised by each rider, which means an extra £1,000 for CRY. This also means that with Bev’s £505 and the match funding we will have raised a total £3,611. “Above are photos of us standing in front of the banner showing which charities have benefited from our bike ride, and a few of us standing in front of Mont St Michel.” Judith Miller.

In Memory of

Richard Neville

Sue Sewell sent in £300 from family and friends in memory of her husband.

In Memory of

S W ‘Mick’ Mummery

In Memory of

Jennifer Newton

Brian Eve sent in £100.

Janet and Gill took part in the Cleveland Way Walk and raised £700.

In Memory of

James Murgatroyd

Gary and Rose sent in £153 from Etwall Parish.

In Memory of

Bethany Mycroft

Adrian and Amanda Topp sent in £2,500 raised through various fundraising activities.

58

In Memory of

Jason Nixon

Vicky Theaker took part in the 10k Superhero Walk and raised £1,506.43.

Be Theaker took part in the 10k Superhero Walk and raised £142.

Sonia Allen took part in the Superhero 10k walk and raised £415.

Marie Simpson took part in the 10k Superhero Walk

Issue 79 | May to August 2019


Our Fundraisers and raised £100. •

Stefan Baran raised £267 from a bungee jump.

In Memory of

Charlotte Orwin

Jan Giles sent in £100.

In Memory of

Richard James Northedge

Derek and Pat sent in £100 in remembrance of Richard’s birthday.

In Memory of

Amy Osborne

Tom and Charlie took part in the Yorkshire Half Marathon and raised £749.83.

In Memory of

Abbie O’Keefe

Daniel Emmett took part in the London Marathon 2019 and raised £2,480.10.

In Memory of

Karl Howell took part in the London Marathon 2019 and raised £5,085.

Sarah Osborne took part in the London Marathon 2019 and raised £3,600.88.

In Memory of

Andrew Oliver

• Kate Gowans donated £100. • Cockerton Ladies Group donated £250. • Judith Oliver sent in £105.35 raised from her craft stall. •

The Richardson Singers sent in £260 raised at a concert at Elm Ridge Church.

Pat Skipsey of Cockerton Methodist Ladies Group organised an afternoon tea and raised £650.

Shalona Beaumont and four of her friends donated prizes and held a raffle and raised £295.

Judith Oliver sent in £240 raised from the sale of teas, coffees and cakes at their recent screening day.

Mr and Mrs Ottolini organised a quiz night and raised £235.

Thomas and Jake Shaw sent in £102 raised from an Easter egg raffle.

Oliver Clarkson sent in £210 raised by The Cornerstone Christian Centre collected at a Mothering Sunday service.

www.c-r-y.org.uk

Jamie Osborne

In Memory of

Thomas Padmore

Singtel (Europe) Ltd sent in £161 raised from a cake sale.

In Memory of

Taylor Panton

Peter Fancourt took part in the London Landmarks Half Marathon 2019 and raised a total of £1,610.

In Memory of

Paul Parker

Katrina Parker sent in £100.

In Memory of

Andrew Parr

• Ken Jones forwarded £500 from the Preston Rotary Club.

59


Our Fundraisers •

Mrs Smith sent in £1,501 raised through a curry night and raffle at the Silk Route restaurant in Preston.

Ruth Lowe sent in £250.

In Memory of

Christopher Parr

Lauren Crimes took part in the Stratford Half Marathon and raised a further £368.74.

In Memory of

In Memory of

Daniel Parry

James Paterson

Claire Woodward sent in £200 on behalf of Green Tree Timber Ltd.

Laura Scriven took part in the London Marathon 2019 and raised £2,800.96.

In Memory of

In Memory of

Ian Parsons

Andrew Patterson

Gareth Godfrey took part in the London Marathon 2019 and raised £2,611.20.

Kiera Kilgarriff organised a tombola and collection at a recent screening day at Rivington and Blackrod High School and raised £230.

In Memory of

Shreeya Patel

In Memory of

James Patrick Patterson

Jennifer Fontaine forwarded a donation of £1,051.55 from the Patel family and staff and students of Woodford County High School.

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• Peter Patterson sent in £100 raised from his church’s 100 Club Draw. • Mr M O’Gorman sent in £1,136.54 from the Brentwood Circle of the Catenian Association. •

Petter Patterson sent in a total of £125, including: £30 from Mr and Mrs Smith; £40 from Mr and Mrs Slater; £30 from Mr and Mrs Brisbourne; and £25 from Mr and Mrs Gaut in lieu of gifts at his 50th wedding anniversary.

Kelvin Wilson and Sid Curtins organised a charity golf day and raised £4,810.

Kelvin Wilson sent in £540.

Issue 79 | May to August 2019


Our Fundraisers •

Mr P Moore donated £250.49 on behalf of the Billericay Circle of the Catenian Association raised through raffles.

In Memory of

In Memory of

Marie Phelps

Susan Brummitt donated £150.

The Phelps family sent in £329.40, representing donations received in lieu of floral tributes in memory of Marie.

Jenni and David Paul

Fiona Queen took part in the Great Scottish Run and raised £755.

Emma Barrie took part in an army assault course and raised £135.

In Memory of

Duncan Phillips

Jeremy Jackson sent in £227 raised from the sixth memorial football match.

In Memory of

Connor Pearce In Memory of

Frankie Rogers sent in £110 via JustGiving raised through sponsorship from completing the Machu Picchu Trek.

James Phillips

• Claire Howes took part in the London Marathon 2019 and raised £3,113.42.

In Memory of

Christopher David Peat

Brian Thompson sent in £250 in lieu of presents for his diamond wedding anniversary in memory of his grandson.

In Memory of

Emma Peek

Katy Clarke took part in the London Marathon 2019 and raised £4,438.35.

In Memory of

Jonny Peel

Jason Park donated £500 as a thank you to Jonny’s family for gifting his tools to Jason and his friend Aubrey.

In Memory of

Benji Percival

Susan Pearce took part in the London Landmarks Half Marathon 2019 and raised a total of £1,110.

www.c-r-y.org.uk

• Naomi Robertson took part in the London Marathon 2019 and raised £3,113.42. •

Natacha Lennon took part in the London Marathon 2019 and raised £3,113.42.

Fiona Barnes took part in the London Marathon 2019 and raised £3,113.42.

In Memory of

Rebecca Phillips

• Sharon Topple at STE Independent Celebrant & Events sent in £200. • Councillor Mick Fraser at Suffolk County Council sent in a grant of £300 towards the cost of a Rodeo Bull and live band for a CRY family fun day.

In Memory of

Alexis Phillips-Martin

Emma Hackett raised £265 through her birthday celebrations.

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Our Fundraisers In Memory of

Jake Pickford

• Gaye Pickford sent in £485, including: £405 raised at a memorial football match; and £80 representing funeral donations following the passing of Jake’s best friend’s grandfather. •

Leanne Savage organised a raffle and raised £155.

Gaye Pickford forwarded £140 donated by Chris Danes and family.

Rhymney Fire Station organised a charity car wash and raised £511.

In Memory of

Sara Pilkington

James Wilder took part in the London Marathon 2019 and raised £3,610.01.

In Memory of

John Pirie

• Frank and Eleanor Hunter and the

North Mainland Gardening Club each sent in £1,000. • Siobhan Pirie forwarded donations totalling £2,336, including: £1,110 from Christina Burton in memory of her husband, Jocky Burton; £500 from Annette Strachan in memory of her auntie, Mrs Minnie Smith; £50 from Maureen Thomason; and £676 Hazel Peterson raised from a raffle run by the local hall in Unst.

In Memory of

Alessandro Pomfret

• Henry Smith took part in the Hertfordshire Half Marathon and raised £375. • Nadia Pomfret raised £112.44 via MuchLoved.

62

In Memory of

Richard Ponting

Rita Ponting sent in £605, including: £105 raised through the sale of her jams and chutneys; and £500 raised from giving a talk about CRY at a Dragon’s Den event for the Thornbury Round Table: “In February of this year, Thornbury Round Table placed a notice in our local Gazette advising they were going to put on a ‘Dragon’s Den’ event to give money they had raised to local charities, and any interested parties to get in touch. To enter I had to send a five minute video talking about who I was and what charity I wanted to put forward – they would then let me know if I had won a place in the event. “With the help of my good friends Kay and Ellie we made a video and sent it in. To my surprise, I was accepted and asked to attend the event in The Swan Pub in Thornbury on June 12th, along with other charities, and I would have to give a talk about the charity. Once again with the help of Kay and Ellie, we put together a PowerPoint presentation about CRY. “On the evening of June 12th, my supporting friends and I turned up at the Swan and I was greeted by the Round Tablers as if they already knew me – they were a really friendly bunch of chaps. The Swan filled up with all the other charities and their supporters and I realised how many people I would be presenting to. “There were four Dragons – one dressed as Guy Fawkes (they organise a firework display in November), one was dressed as Santa Claus (they take a sleigh around the district collecting money for charity), the chairman was dressed as himself, and the last one dressed as Deborah Meaden. “I have never done anything like this before and I didn’t want to let CRY down, so after several deep breaths and three other charities making their bid I then stood up. “After a few hesitations I got into my stride and talked about CRY, how and when it was founded, and the need to bring awareness to people. I talked about Howard and Sebastian English and the heartbreak people go through when we lose a loved one in these circumstances. I talked about screening and showed pictures of some of CRY’s Patrons that they would recognise. Lastly, I showed a picture of my son, Richard, and talked about him. All through my talk no one spoke; you could hear a pin drop. “I had gone there that night to get the word out about CRY as very few people in my district have heard about this wonderful charity. I had no expectations of money at all. To my huge surprise, the Dragons made a donation of £500.

Issue 79 | May to August 2019


Our Fundraisers “I hope more people now know about CRY and what its aim is. This has given me the courage to give a talk again if I am asked.”

In Memory of

Craig Powell

Luke Powell took part in the London Marathon 2019 and raised £5,000.

In Memory of

Stuart Pybus

Joan Pybus sent in £270, representing donations received in lieu of floral tributes in memory of her husband, Gerry Pybus, and their son, Stuart.

In Memory of

In Memory of

James Poynton

David Quinney

• Jim Poynton sent in £120, representing donations received in lieu of floral tributes in memory of James’s grandmother, Mary Cox. •

Mark Dickinson took part in the cycle from Morecambe to Bridlington and raised £1,510.

Graham Lysaght sent in £500 raised through the Birkenhead Scout Gang Show.

In Memory of

Ben Ramsay

Kingsfleet County Primary School sent in £617.07.

In Memory of

Robert Poysor

Bewdley Methodist Church donated £300.

In Memory of

Elizabeth Ransom

In Memory of

Mark Richard Price

Dawn Price sent in £177.46 raised from collection boxes.

In Memory of

Tanja Price

• Mike Bonstow sent in £200. • Jane Powell sent in £100. • Jackie Josephi sent in £100.

www.c-r-y.org.uk

Emma Greensted raised £440.40 via her MuchLoved page.

Kelly-Ann Vannorden took part in the London Landmarks Half Marathon 2019 and raised £1,736.55:

“I signed up for the London Landmarks Half Marathon back in September 2018. I wanted to run for CRY as this is a charity that is very close to our families’ hearts after Elizabeth Ransom died suddenly back in 2016 at the age of 11. The awareness, support, help and screening that they offer is remarkable and I wanted to do something that would help even just a little bit. “My mum is very good at organising and with the help of the local Irish network they managed to organise an afternoon tea/quiz to help raise funds, and they raised a staggering £1,100! I also had lunches at work, and people were kind enough to sponsor me.

63


Our Fundraisers “Training was hard as I had never run before. It was also a struggle to fit it in with two small children and working full time. The support I got off my family helped me fit training into my life. “The day of the race was terrifying, but I knew that no matter what I would finish it! It was a lovely warm day which helped. The warm-up area had a wonderful atmosphere and everyone seemed to be buzzing and it was very well organised. At the start line I felt sick but knew the time had come where I just had to focus. “The crowds and the cheering stations were amazing. There were choirs, steel bands, dancing and just general cheering. The race itself was really hard, but the scenery and people carried you through. I did hit a wall between 7-10 miles... my family met me at mile 11 and walked with me to keep me going and give me the boost that I needed. I finished the race in 3 hours 49 minutes – not the fastest time in the world, but I had finished it. We had raised money and awareness for a very worthwhile charity. For anyone who is thinking about doing it, all I can say is it’s hard but the reward is so worth it!! “The CRY fundraising team were helpful and supportive, and helped with all things fundraising. Also the Landmark Marathon team sent lots of supportive emails... So go on, do it!”

In Memory of

Craig Rawlinson

Kay Rawlinson forwarded £1,000 from the Skegness Coasters’ 10k run.

In Memory of

Katie Ray

Naomi Richardson took part in the Leicestershire Half Marathon and raised £140.

In Memory of

Claire Louise Reed

• Eleanor Hayes sent in £3,355.75. • Graham and Anne donated £100.

In Memory of

Alexandra Reid

Helen Fidler sent in £680 raised through taking part in the Strictly Dance for CRY event.

In Memory of

Benjamin Rendall

Christopher Rendall sent in £1,110 raised from the annual invitational cycle ride.

In Memory of

Darren Ridehalgh

Ilona and Brian Ridehalgh celebrated their golden wedding anniversary and raised £300.

In Memory of In Memory of

Ramila Raval

Swapna Mandal donated £100.

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Jack Riding

Joe Gibiliru sent in £3,500 raised from a charity event at Prescot Cables FC.

Issue 79 | May to August 2019


Our Fundraisers In Memory of

Paul Cree took part in the London Landmarks Half Marathon 2019 and raised a total of £1,275.

Sharon Hudson took part in the London Marathon 2019 and raised £729.40.

Waverley Grainger took part in the London Landmarks Half Marathon 2019 and raised £495.

Lisa Giove took part in the London Landmarks Half Marathon 2019 and raised £600.

Paul, Lauren and Bella donated £150.

• Stephanie Manthorp sent in £420 raised from a bake sale at DC Thompson.

Brentford FC Community Sports Trust sent in £1,665 raised from the club’s end of season dinner.

• Stephanie Manthorp forwarded a match giving donation of £420.84 from DC Thomson in respect of a bake sale.

Rab Rough Runners, Zoe, Ryan, Chelsea and Ross, raised £196.55.

Michael Lorimer sent in £200 raised from the Arup BE1 Fantasy Football League.

Gareth Roberts

In Memory of

Robert Rowan

Jackie Rowan sent in £205 raised from a 5k sponsored walk at the Brentford FC Community Sports Fest.

Pearson Hepburn Butchers completed a 5-mile sponsored walk and donated £1 for every steak pie purchased in March and April and raised £600.

Suzanne Rowan sent in £150.

Suzanne Rowan took part in the London Landmarks Half Marathon 2019 and raised a total of £14,725.

In Memory of

Donna Rowlands

Ryan Lee took part in the London Marathon 2019 and raised £2,355.

In Memory of

Tom Russell

Toby Butterworth took part in the London Marathon 2019 and raised £2,451.42.

In Memory of

Luke Clayton Rutter

• Katie Brownwood donated £340 raised in lieu of 40th birthday presents. • 4th Ansdell Rainbows took part in a sponsored run/walk and raised £350.

John Hyland took part in the London Landmarks Half Marathon 2019 and raised a total of £5,365.

Sherry McDonagh took part in the London Landmarks Half Marathon 2019 and raised a total of £500.

www.c-r-y.org.uk

In Memory of

Angela Salisbury

Joanne Heald sent in £123.75, representing donations raised in lieu of floral tributes, in memory of her mother, Angela, and sister, Melissa Woods.

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Our Fundraisers In Memory of

In Memory of

Ryan Scarff took part in the London Landmarks Half Marathon 2019 and raised a total of £1,100.

Staff members and customers of the Greenock Road Co-operative Store in Bishopton sent in £500.

Ryan Scarff

In Memory of

Mair Schmeinck

Alison Schmeinck sent in £1,040.10 raised from an event in memory of her daughter.

Anna Pryce sent in a further £700 raised from the Across Wales Walk.

Matthew Seymour

In Memory of

Olivia Shaw

Joanna Nightingale-Slade and her team took part in a Tough Mudder 5k and raised £1,522.50.

In Memory of

Jack Sheriff

In Memory of

Mike Scott

Thomas Poole took part in the Bedford Harriers Half Marathon and raised £610 in memory of Jack and Emily Windus.

• Venessa Gardezi donated £100. • Allan and Marjorie Scott forwarded £320 raised in lieu of presents for Allan’s 70th birthday.

In Memory of

Evan Shonfield

Peter, Sharon and Freda donated £100.

In Memory of

Madeline Siddall

Tom Brooks sent in £400.

In Memory of

Daniel Seager

In Memory of

Ben Simpson

Matt Edmonds sent in £3,517, including: £3,050 from taking part in the London Marathon 2019; and a further £467 donation.

In Memory of

William Sentance

Lillian Sentance sent in £432.50, representing donations received in lieu of floral tributes in memory of her husband.

66

Rob and Penny donated £1,050.

In Memory of

Aashi Sinha

Forest School Sixth Form sent in £1,274.01 raised from their annual Fusion show.

Issue 79 | May to August 2019


Our Fundraisers •

Ajay and Suman sent in £5,438 raised from cake sales and donations:

“The annual CRY cake sale in memory of Aashi Sinha was held on Saturday 18th May 2019. This sale has grown to include Indian savoury snacks, artisan bread and plants alongside beautifully decorated cupcakes, loaves and celebration cakes, as well as vegan and gluten free cakes. Fun activities such as ‘Guess the M&Ms’ competition cake, a cake auction and a raffle for beautifully decorated cake with the CRY logo. “We were delighted to have the new Havering Mayor Councillor Michael Deaon Burton who highlighted that the work of CRY prevents deaths with its screening, and appreciated Val Scott, our local CRY volunteer who spoke eloquently about the benefits of screening for her son. “Whilst socialising and having fun, we raised £5,200 and had further payments come in. We are so very grateful to everyone who generously contributed their time, creative skills and cash to help such an amazing cause. Special thanks to Sweet Rose Bakery, Barfia, Sainsbury’s, Waitrose and Saanjha Chulha restaurant for their support. THANK YOU.” Mina.

In Memory of

Nicola Skinner

Lenna Thompson took part in the London Marathon 2019 and raised £2,822.62.

In Memory of

Benjamin Michael Smith

• King Edward VI School in Southampton raised £577.24.

www.c-r-y.org.uk

Jacinta McCann sent in £100.

Laura Self donated £100.

In Memory of

Robert Daniel Smith

• Linda Smith sent in donations totalling £3,150, including: £1,500 from Alison Spenceley and Sarah Sotheran; £1,590 from a charity night; £50 from Marion Chapman; and a further donation of £10. •

Linda Smith sent in £585.93 raised at a recent screening.

Linda Smith forwarded £1,000 donated by the Langley Park Defibrillator Fund.

Paula Mollon sent in £500 raised from her husband’s 60th birthday celebrations.

In Memory of

Sam Standerwick

• Adrian and Debra sent in a further donation of £3,800. • Paul Dixon forwarded a donation of £186 collected by Steve Flower.

In Memory of

Paul Stephens

Joe and Faye completed the Portsmouth Coastal Marathon and raised £452.

Tom Hastings and Team Wildern sent in £1,087 which was raised through participating in a Hell Run:

“Our team consisted of friends and colleagues from Wildern School. What started out as an opportunity

67


Our Fundraisers In Memory of

to have some fun quickly developed into a fundraising activity in memory of a friend who recently passed away far too soon. With a great team effort we ran, climbed and crawled through hills, bogs and streams in the 2018 Hell Run.

Paul Sykes

• Ross Emerick took part in the ESM Utd

v Jake’s Allstars football match and raised £105. • Pat Sykes and Rob Cowan took part in the London Marathon 2019 and raised £2,003.

In Memory of

Kelsey and Zac Taylor

“The generosity of so many was incredible and we are so proud of our team, many of whom had never done an event like this before, and we are really honoured to have been able to contribute in a small way to such a worthwhile charity.” Tom Hastings.

Amanda Pilling at the Village Inn Public House sent in £234.50 raised from a charity football match.

In Memory of

In Memory of

David Stewart

Ross Taylor

Davie and Christine sent in £350 raised in lieu of gifts at their golden wedding party.

In Memory of

Lewis Stewart

Graeme Stewart took part in a London to Glasgow Bike Ride and raised a further £250.

Investec Bank plc sent in a matched giving donation of £2,000 in respect of fundraising by employee Graeme Stewart.

In Memory of

David Stiller

Linda and Bryan Stiller sent in £200 raised through a bake sale.

In Memory of

Ian Strange

Patricia Strange sent in £100 to commemorate her son Ian’s birthday.

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• Paul Griffin forwarded a donation of £1,000 on behalf of the Laing O’Rourke Charity Committee in support of Marian Redfearn’s charity walk in memory of her son, Ross. •

Kevin Taylor donated £400.

In Memory of

Ryan Terry

Stephen Laws sent in £100 raised in lieu of a gift for Malcolm’s 70th birthday.

Stephen Laws sent in £100 in memory of Janet Powell.

Janet Sharples took part in the London Landmarks Half Marathon 2019 and raised a total of £1,221,41.

In Memory of

Joanne Tew

Marie Richards took part in the London Landmarks Half Marathon 2019 and raised a total of £920.

Issue 79 | May to August 2019


Our Fundraisers In Memory of

Jack Thomas

• June Thomas sent in donations totalling £4,113.06, including: £2,400 raised at her screening and summer ball; £500 from Mr and Mrs Lewis; £129.70 from Markham One Stop Shop; £107.22 from Betty’s Boutique; £166.42 from Asda Brynmawr; £387.06 from Taekwondo Wales; £324 from Caerphilly County Borough Council; £75.96 from Asda Blackwood; and £22.70 from M & M Appliance Repairs. •

Victoria McCreesh sent in £250 on behalf of Biotage GB Ltd.

In Memory of

Nicholas Thomas

• Jenny Thomas sent in donations totalling £846.50 raised from an event to commemorate Nicholas’s 40th birthday:

“On 18th June 2019 we held a charity birthday party to mark what would have been Nicholas’s 40th birthday. The event was attended by family and friends. Music for the evening was provided by Nicholas’s uncle, Malcolm, and Darren, his cousin-in-law. His sister, Natasha, sang ‘Hey Brother’ and read a poem she wrote for him. Josie Newton, a local musical talent, sang several of her own songs. Ticket sales and a raffle raised £845.

“Thank you to Asda, Sainsbury’s, Tesco, Warren James, Tropic Skincare, Langage Farm, and Computer Accessories Plympton for their kind donations to the raffle.” •

Jenny Thomas sent in £227:

“Plymouth Rock Choir held a cake sale in memory of Nicholas Thomas and raised £227 for CRY. A big thank you to my fellow Rockies for their support and generosity.”

In Memory of

Sarah Thomas

Anna Barton sent in £1,093 raised from a netball tournament:

“A Virgin Money Giving page set up for those who were unable to attend raised £270. My cousin and her husband climbed Snowdon which has raised £310 so far, with money still coming in. “A big thank you to all those who were able to attend the event, and those who were not able to but made a financial donation online.

www.c-r-y.org.uk

“On the 18th May 2019 at Caer Elen School located in Haverfordwest, a fun mixed charity netball tournament was held in memory of Sarah Thomas. Sarah, an active member of the netball community, sadly passed away unexpectedly 10 years ago. To remember her and raise funds for Cardiac Risk in the Young, Anna Barton and Jade Jones, along with the support of the Chaos Netball Club committee, hosted the tournament.

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Our Fundraisers “The tournament was a great success, with 10 teams of all ages and abilities turning up. Each team had between seven to 10 players, with three male members per team allowed on court at a time. The 10 teams were split into two pools, and after some closely fought matches, the teams were then ranked and the playoffs commenced. Each team put their all in and really committed to the day and the final was a nail-biting match between two fairly experienced teams. The medal ceremony saw ‘And the Winner is’ being crowned the champions of the tournament and they eagerly received breakfast vouchers kindly donated by Caddies in Freystrop. “The turnout included many of Sarah’s close friends and her immediate family, which was lovely to witness. The atmosphere was relaxed, fun and slightly competitive and with the sun shining, the organisers couldn’t have wished for a better day. It was lovely to see so many people being active and enjoying the sport, whilst helping raise £1,393 for CRY. The event was extremely successful thanks to the support received from many local businesses that donated prizes for the raffle. Haverfordwest Leisure Centre also kindly facilitated the event, which was sponsored by MPH Hire. Pictures of the day were captured by Eleri Buck photography.” Anna Barton.

In Memory of

Christian Thunhurst

Sean Aldridge and friends donated £265.

In Memory of

Scott and Mike Thurlow

Marcelle Thurlow sent in £100 to commemorate the 20th anniversary of the passing of Scott.

In Memory of

Ryan Tilley

Ian Allen took part in the London Marathon 2019 and raised £3,204.72.

In Memory of

Roy Tolley

Alex Wood took part in the Corsham 10k and raised £501.

In Memory of

Alex Townsend

Jack Budd sent in £455.44 raised from a charity pub quiz.

In Memory of

Jack Thompson In Memory of

The People’s Dance Company held a Fitness with Friends Festival and raised £500.

Isabelle Tudisca

• Miss Shaheen raised £300 during Ramadan.

In Memory of

Oliver Thompson

• Graham, Cheryle and Team took part in the Brussels 20k 2014 and raised a further £1,271.43. • Vikki Smith sent in £1,308.50, including:

£592 raised through taking part in the London Marathon 2019; and £716.50 from taking part in the Manchester Marathon, Chester Marathon and Snowdonia Marathon.

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• Aina Wood sent in £1,166 raised from a parish ball. •

Leo and Della sent in a total of £2,045.50.

Della Tudisca sent in a further £376.80.

Chingford Rotary Club sent in £500.

Neil Dewin sent in £180 raised from The Summer Shambles 2019 Golf Day.

Issue 79 | May to August 2019


Our Fundraisers •

The Blue Room Café held a Christmas raffle and raised £365.

Jess McNicholas sent in £7,185.01, representing a matched fund donation from her employer, State Street Matching.

Mayor Stella Murphy at Loughton Town Council sent in £335.54 raised at the Jessel Green Fun Day:

“Great fun was had by all who attended the Jessel Green Fun Day on Sunday 30 July for this popular annual, not-for-profit, community family fun event. Large crowds attended and enjoyed all the entertainment taking place in the arena from music, dance and a children’s magic show. In addition to all the usual bouncy castles, inflatables and 18’ climbing wall, there were fun fair rides for children, horse and carriage rides, bungee trampolines and a children’s entertainer. A free soft play area for the under 5s was also a great success. We were pleased with the great variety of community and charity stalls, which included a tombola in aid of the Town Mayor’s charity, CRY. The event is organised by Loughton Town Council in partnership with the Epping Forest Community Church, the Red Balloon Foundation and Restore Community Church. The event was also sponsored by John at the Cottage Loaf pub who provided live music from 4pm into the evening that rounded off the day perfectly.” Brent Smith. •

Lorraine Abery forwarded donations totalling £775 raised at Slimming World:

“Every year through my Slimming World groups, we try and raise money for charity. This year, CRY was selected as we try to look for local charities and a few of my members have been affected by what happened to Isabelle, as their children attended the school at the time this tragedy happened. I arranged a 5k event in our local nature reserve for my members and their children, families and dogs. It didn’t matter how the 5k was completed, but what

was apparent is how people work together to support charity. Buckhurst Hill Slimming World had a great time whilst getting healthy and raising money. I have to say I was blown away by my amazing members coming along and helping, participating and sticking their hands in their pockets to raise £755 for CRY.”

In Memory of

Jayden Tullett

Joanne King took part in the Jungle Challenge and raised £245.

Ruby Hemming took part in the Jungle Challenge and raised £105.

In Memory of

Hannah Turberville

Richard Turberville and Andrew Barringer raised £200 at the Sotterley Charity Horse Show.

In Memory of

Sian Turnball

John Turnball donated £100.

In Memory of

Darren Uscroft

Reece Salmon-Bocking donated £100.

In Memory of

Chloe Waddell

Fiona Waddell sent in £441.

In Memory of

Richard Waight

• Ken Waight forwarded donations

totalling £150 raised from a recent screening.

www.c-r-y.org.uk

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Our Fundraisers Ken and Jackie organised a memorial golf day and raised £7,500:

“The 9th Richard Waight Memorial Golf Day was held on Friday 17 May 2019 at Doncaster GC, with 100 golfers taking part in warm sunshine, raising £8,025 on the day. This was the best yet and with the prospect of further corporate donations to come, we continue to break records with this event. “Everything we did was in Richard’s memory and we have now raised over £71,000 since we started in 2011, with CRY and SADS UK continuing to benefit. Monies raised will be used to continue our defibrillators programme with SADS UK and for another cardiac screening day through CRY, for young people aged 14 to 35. Yet another massive thank you to all of you who played, helped or just supported us on a great day for all involved. A National Field “We again had 26 teams taking part, starting from both 1st and 10th tees, from midday. Participants again joined us from places as far afield as London, Cambridgeshire, Cheshire and Tyneside/Wearside. We also welcomed back Peter Hepworth’s Players and the Round Table team, whilst David Halford and his team from Retford joined us for the first time. This year’s stats

Fundraising on the day “The raffle made over £1,240, whilst in the auction a pair of Doncaster Knights season tickets raised £330 and two LNER first class returns raised £190. 19 ‘four-ball’ vouchers raised nearly £1,700, including £200 and £160 for Lindrick GC and Pannal GC, respectively. Prize giving “The winners were Steve Thornton’s Smasher’s Fore team, with a record 103 points. Henshaw Pratt were again second, whilst The Fore Tops won bottles of whisky for finishing third. Well done to all the winners.”

In Memory of

Benjamin Walker

Stephen Harvey took part in the London Marathon 2019 and raised £4,165.

In Memory of

Leon Walker

Claire Speer and Noelene Russell took part in the London Landmarks Half Marathon 2019 and raised a total of £565.

• A total of 312 golfers have now played in our nine golf

days, including 14 ‘ever-presents’

• Another seven have only missed one year • 64% of this year’s entry played last time out • 31% played in the first year, 2011

In Memory of

Thomas Wall

Derek Gammage took part in the Budapest to Sofia Bike Ride and raised £250.

• 14% played for the first time in 2019 • 15% this year were Doncaster GC members

Half way house “Our usual team of helpers were there to welcome you at the 10th tee and with supporters providing drinks and cakes, they took £239 in donations! Thank you to all.

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In Memory of

Neil Ward

Elaine Ward sent in donations totalling £6,485.50, including: £700 from Dronfield Singers; £50 from Mrs Betty Oakley; £32 from choir member Jill; £25

Issue 79 | May to August 2019


Our Fundraisers from Anne and Gordon Forrest; £1,180 from NCS; £2,000 from Bakewell Rotary; £726.50 from Alfreton WI; £50 from Ashover WI; £952 of screening donations; £750 from Christine Gardner; and £20 from Dore Mother’s Union. “Ian and Elaine Ward, CRY County Representatives for Derbyshire, received a County Community Award 2018 from the Provincial Grand Lodge of Derbyshire Freemasons for their work with CRY, plus a cheque for £1,000 which will go into the Neil Ward Memorial Fund to fund local screenings. Pictured here are Ian and Elaine with Robert Procter of the Dronfield Lodge, who nominated Ian and Elaine, and his wife Liz.” Elaine Ward.

In Memory of

Melissa Watts

Richard Watts sent in a further donation of £175 raised from his Kilimanjaro Trek.

In Memory of

Lily Webster

Leah Pearson took part in the London Landmarks Half Marathon 2019 and raised a total of £722.

In Memory of

Darren Wells

Annette Quinn sent in £160 donated by family and friends in memory of her brother on his birthday.

In Memory of

Christopher Wheatley

In Memory of

Alex Watley

Val Watley sent in £110 raised from a walkers group.

Emma Durrant at The Sound Collective sent in £1,000 raised by the Chorus performing as a choir in return for donations to CRY throughout 2018.

In Memory of

David White

Lisa Steel sent in £3,389.

In Memory of

George Watson

• Nigel Wilkinson sent in a match giving

donation of £500 in respect of fundraising by Marie Watson and her colleagues. • Callum Antrobus donated £1,000 in memory

of his friend. •

Ann Eley sent in £255 collected from friends and family at her brother Howard Eley’s funeral.

David Dolphin donated £1 for every ‘happy birthday’ message he received on Facebook and raised £200.

First Friends PDN Ltd held an ‘adopt a teddy’ stall at Oakfest Carnival and raised £135.

www.c-r-y.org.uk

In Memory of

Emlyn Arthur Wibberley

Alex Ockwell sent in £130 raised at a charity cricket match between Exeter Uni CC and Putney CC.

In Memory of

Neil Wickers

• Irene Wickers sent £750, representing

donations received in lieu of floral tributes in memory of her husband, Bill.

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Our Fundraisers •

Irene Wickers forwarded £335 from Mrs L Cole, representing donations received in lieu of floral tributes in memory of Bryan Cole, a close friend of Neil’s.

In Memory of

Craig Wilson

Tony Wheatman took part in the London Marathon 2019 and raised £586.20.

In Memory of

In Memory of

Stevie Wiggins

Kevin Wilson

Christine Abram sent in £500 from the Duchy of Lancaster and The Heartfelt Group: “The Heartfelt Group joined Preston Pulse in the city centre for a day of community groups getting together. Heartfelt had a tombola and an awareness campaign. This was very successful with various groups requesting more information and offering help. The Guides and Army Cadets were especially interested in making their members aware and offering to fund raise. The group Ann Coles, Christine Abram, Judith Beynon and Sheila Wiggins were also delighted to have the support of the Mayor of Preston Cllr David Borrow.”

• Sandra Daly sent in £300. • Stephen Boult sent in £405 raised at a charity football tournament:

“On 11th May 2019, we played a three team football tournament with the current Rhein team. Rhein was the football team Kevin played for. All the players on the day had played for Rhein at some point over the years. After three games and lots of goals, the current Rhein team won. “Everyone had a good time, the weather was good, we raised some money and remembered a mate. After 12 years of doing this, it is still going strong and we are still raising money for CRY. This year, my work, Open Health, made a donation to CRY as well, which has also been acknowledged, so a big thank you to them for donating.”

In Memory of

Anthony Williams

Tracy Jones forwarded £200 raised from her parent’s golden wedding anniversary.

In Memory of

In Memory of

Joseph Williams

Jemima Wilson

Tracey Croucher at Nationwide Building Society raised £612.02.

• Jessica Harman took part in the London Marathon 2019 and raised £1,931.

In Memory of

• Marcus Harman took part in the London Marathon 2019 and raised £1,900.

Nicolas Willoughby

Gabriella Hill took part in the London Landmarks Half Marathon 2019 and raised a total of £675.

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George Wilson took part in the London Marathon 2019 and raised £1,921.20.

Issue 79 | May to August 2019


Our Fundraisers In Memory of

In Memory of

Lee Wilson

Sally Collings took part in the London Marathon 2019 and raised £3,261.20.

In Memory of

Allan Winney, Joanne Evans and Clare Liversage

Susan Winney sent in £200, representing donations received in lieu of floral tributes collected at the funeral of her husband.

Julian Wort

Shirley Wort sent in donations totalling £3,326.50, including: £202.50 from Lions Club (Allison Rumming Swimming Team); £104 from Sally Lacey from organising a Buddy Holly tribute night and a raffle; £20 from

Malcolm Payne; and £3,000 raised at a sponsored swim with the support of the Frome Lions Club.

In Memory of

Brian John Withers

Mrs Withers sent in £185 donated in lieu of floral tributes in memory of her husband.

In Memory of

In Memory of

Mark Wynn

Michael Akers sent in £125 raised by the Re-Union Football Club from their winnings from the Bristol Corinthians Over 45’s League.

Jake Wood

Jason Mitchell took part in the Brighton Marathon 2019 and raised £375.

In Memory of

Melissa Wood

In Memory of

Michael Yendall

Mr and Mrs Yendall donated £500 raised at a charity football match in memory of Michael and Cerys O’Boyle.

Shannon Salisbury organised a sponsored walk and raised £983.74 in memory of her mother.

In Memory of

Nathan Woodcock

Maureen and Vernon Elmes sent in £313.56, including: £193.56 raised from quizzes organised by the Foresters London and the South England Quiz Committee; and £120 raised by The Teddington Bowling Club.

In Memory of

In Memory of

Amanda McDonald sent in £300 on behalf of East Kilbride Pirates and Hart Services raised at a celebration game.

Andy and Julia forwarded £120, including: £100 from Mr and Mrs Butter; and £20 from Mr and Mrs Reynolds.

Robert Worboys

www.c-r-y.org.uk

Michael Yorston

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General Fundraising •

Ackworth Junior girls football team raised £213.

Bruern Abbey School organised various fundraising events and raised £997.47.

Form 6B at Allestree Woodlands School organised bake sales and raised £1,031.55.

Lucy Bulkeley took part in the London Marathon 2019 and raised £1,468.20.

Applied Graphene Materials donated £530.

Candice Bygraves sent in £500.

CRY Representaive Sue Dewhirst collected a cheque from Arla Foods Ltd for the amount of £1,806.15.

Naomi Carlisle took part in the London Marathon 2019 and raised £2,982.66.

Cereal Partners UK sent in £250 in sponsorship of Stuart Corrigan’s fundraising efforts.

Cheadle Hulme High School sent in £297.14.

Clifford Chance LLP donated £250.

Sarah Coakley sent in £150 raised from a charity ball.

Bernard Keogh of Rotary Club of Northwich sent in £471 on behalf of Compass Minerals Ltd of Winsford.

Grant Corton took part in the London Marathon 2019 and raised £2,236.

Rebecca Cox took part in the London Marathon 2019 and raised £2,334.60.

Geoff Ashburn sent in £600 on behalf of Dartford Football Club.

The Co-Operative Group Limited donated £688.69.

ASI Aerial & Satellite Installations sent in £735.

Hattee Bal donated £100.

Stuart Corrigan at Barratt Homes organised a charity football match and raised £250.

John Battle took part in the London Marathon 2019 and raised £2,610.

Harrison Davis took part in the Great South Run and raised £547.64.

Bedford School sent in £99 raised from a charity collection.

Derek, Sam and Catherine took part in the Great South Run and raised £325.

Berkhamsted Boys’ School sent in £258.50 raised from their PE Award Dinner.

Dr Devries sent in £100.16.

George and Francesca Ashby forwarded a donation of £100 on behalf of Donna Ockenden Limited.

Paul and Karen Blight took part in the Plymouth 10k and raised £322.50.

Lesley Drew sent in £250.

Lynn Brannan sent in £488.90.

Kelly Duncan took part in the London Marathon 2019 and raised £180.

Lily Bristow at Beechbrook Capital sent in £2,000.

Marcus Durie sent in £600:

Geoffry Brook sent in £700 from Old Wykehamist Lodge No. 3548, in memory of a former brethren.

Andrea Brough sent in £140.

“My mother passed away at the age of 68. Although this was due to lymphoma, she was diagnosed with HCM in her early 20s. She was fortunate in that her diagnosis didn’t impact much on her everyday life. However, later

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Issue 79 | May to August 2019


General Fundraising in life her heart did become more problematic and she had to have one or two operations including a valve replacement. When her cancer was confirmed it was partly because she had such a weak heart that they were unable to offer her chemotherapy. My great grandmother died in her sleep at the age of 39 from myocarditis in 1932. I therefore took the decision to see if I had inherited HCM earlier this year and this was subsequently confirmed. “After initial tests at St George’s, Tooting, Dr Joyee Basu asked if I wanted to take part in a clinical trial for those with HCM. With trepidation, I agreed to the three-month trial consisting of an hour of circuits twice a week. “As I hadn’t exercised properly since I was a teenager I was naturally nervous! However, the personal trainers, Claire and Paula, immediately put us all at ease and I got to know a nice group of guys who have toiled with me over the hot summer evenings. I must mention Carmen and Jenny, who have kept an ever watchful eye on our Polar watches to check our heart rates were not too high.

Mandy Frearson sent in £908.50 raised from the Star Group Charity Trial.

Members of the Freemason Masonic Charitable Foundation L5435 donated £250.

Susan Gibbs took part in the London Landmarks Half Marathon 2019 and raised a total of £1,115.

Sue Gilbert took part in the London Marathon 2019 and raised £2,098.08.

Robert Gilder sent in £100 donated in lieu of golden wedding gifts.

Green Lea First School sent in £120 raised through holding raffles at the nursery nativity performance, in support of Rich Meredith.

Haines Watts Bromley sent in £1,400.

John Hallam sent in £5,000.

Paul Harms raised £153 from an Easter egg raffle. • Ben Harness sent

in £161.50 raised through the Dale Park Strikers U9’s sponsored walk:

“This clinical trial is now coming to an end but it has given me the confidence to continue exercising despite my HCM diagnosis. I hope the results are useful in understanding more about this heart condition.

“As manager of Dale Park Under 9s, this charity is one close to my heart. I strive to keep the boys fit and healthy.

“I have decided to make a small donation to help with the essential research into cardiac risk in the young. I am very lucky to have this support. Unfortunately, there are many youngsters where the diagnosis is already too late.” •

Kirsty Dwan raised £103.50 raised by hosting quizzes.

Essex Junior Squash donated £180 of profits from the Essex Junior Open.

Alistair Fielding took part in the Lakes In A Day 50 mile Ultra Marathon and raised £1,280.

Collette Fitzgerald raised £4,085 raised from Tir na night Randalstown.

Ian Fletcher took part in the Robin Hood Half Marathon and raised £377.

Gwyneth Franklin took part in the London Landmarks Half Marathon 2019 and raised a total of £642.60 in memory of Jemma.

www.c-r-y.org.uk

“On Easter Sunday, the team took a walk across our local landmark: the Humber Bridge. The sun was shining and moral with the boys was high. We walked across the bridge then had a short stop for football and ice cream before setting off on the return journey across the bridge and back to the cars. “This was a lovely team building fundraiser for both the children and the parents, who also enjoyed participating on the walk.” Ben Harness. •

Damian Heyen at National Grid, Gravesend donated £100.

Kate Hopkins sent in £1,050 raised in memory of all

77


General Fundraising the Cuckoo Pint customers who have lost loved ones.

Lois Hough took part in the Chester Half Marathon and raised £370.

Lloyds Bank Foundation sent in £1,000 in respect of Nick Saich and Matthew Nelson’s fundraising efforts.

James and Lindsay Huguenin took part in the Robin Hood Half Marathon and raised £532.05.

Anne and David Lock took part in the London Marathon 2019 and raised £2,580.

Rhys Humphries sent in £220 raised from the University of Warwick through their rugby sevens tournament.

Gary Logan nominated CRY to receive a £500 donation from his employer, Hutchison 3G UK Ltd.

Craig Lowrey sent in £100 in appreciation of his son’s screening.

The Inner Wheel Club of Macclesfield Castle sent in £100. CRY was nominated to receive the donation by their President, Janet Hetherington.

David Machin sent in £180.

Dr Jayesh Makan took part in the London Landmarks Half Marathon 2019 and raised £1,050.34.

Donna Manning at Co-op Insurance sent in £440.20 raised through holding raffles and a tuck shop in the office.

Monmouth Comprehensive School took orders for wooden roses, beautifully wrapped in cellophane, and put them together with boxes of chocolates for Valentine’s Day to raise £77.35.

Lynsey Moore raised £118.61 from a balloon pop event:

Wilfred Jevons donated £200.

Richard Johnson sent in £4,404.15.

Craig Jones took part in the Cardiff Benevity Pizza Run and raised £503.46.

Ella Jones organised a bring and buy and cake sale at her Brownie group and raised £69.67.

Ms L Joyce sent in £500 raised from the L&DSJL Finals Day event.

Emma King took part in a 75-mile virtual run and raised £132.50.

The King Edmund School sent in £948.21 raised from various fundraising activites.

Nikki Laney at Royal Wootton Bassett Academy sent in £250.

Pamela Leese sent in a donation of £284.11 raised at an Easter raffle.

Richard Lewin donated £100.

Martina Lewis sent in £120.15 raised from the Primary Care Commissioning fundraising activites.

Sion Leyshon took part in a Land’s End to John O’Groats cycle and raised £845.

Lydia Ling sent in £230 raised from family, friends and work colleagues.

Lloyds Bank Foundation sent in a matched fund donation of £500 in respect of Hollie Brown’s charity night.

78

“As part of our Level 2 Diploma in Administration in South West College, we had a team work unit to complete. For this unit we had to organise and hold a fundraising event for a charity of our choice. As a team, we chose to raise money for CRY. “We held a balloon pop event in which people paid £1 to pop a balloon to potentially win a prize. If they were unsuccessful, they got a sweet for trying. It was fun watching the different ways people popped the balloons: with their hands or standing on them. The reactions were fun as some people jumped while others screamed. “We were very happy we raised £118.61 for CRY. Pictured on the right is our team: Christopher Og Rafferty, Nicole Murray and Lynsey Moore.”

Issue 79 | May to August 2019


General Fundraising •

Vanessa Moore sent in £440 raised by the London Ambulance Service (Barking) holding a bake sale.

Santander Foundation sent in a matched giving donation of £1,500.

Timothy Mowat sent in £553.25 raised at the Wee Howff Dash Sandiway Ales MTB Charity Race.

Alan Schofield sent in £980 raised from the Family Portrait Awards.

Tracy Murphy sent in a donation of £750 from Epsom Allsorts who chose CRY as their charity of the year.

Sevenoaks & District Football League sent in £200 raised through their Charity Cup.

Nat West Plc, Heathrow Commercial Banking donated £2,140 raised through various fundraising activities.

Richard Sharples took part in the Alcatraz Swim to San Francisco and raised £1,265.

Alistair Nimmo donated £500.

Holly Nutcher of Honda of UK Manufacturing donated £250.

Simon Shaw sent in £335 raised from the Waltham St Lawrence Choral Festival.

Harry O’Callaghan sent in £130 raised from holding an information stand at the Full Circle Festival.

Sheffield University Hockey Club took part in the Sheffield Half Marathon and raised £691.25.

The Octopus Foundation donated £500 in sponsorship for Team Meg’s participation in the Marathon Walk London.

Michael Smith raised £150 from a collection at his birthday celebrations.

Ag Stephens donated £100.

Mike Pierce sent in £280 raised through the Enfield and District Vehicle Society raffle.

Sterling Pharma Solutions Ltd donated £500.

Mr G Pole donated £100.

Emma Stevenson took part in the London Marathon 2019 and raised £1,158.40.

Robert Pownell sent in £240 raised from a garden party held by the Grosvenor gardening group in Hyde, Cheshire.

Pamela Stewart sent in £250 in respect of a donation from James Gummett.

George St Ledger sent in £1,390 raised from the profits of his drinks cart at Aberdeen Standard Investments.

St Mary’s Church, Hadlow held a civic service for the incoming mayor of Tonbridge & Malling Borough Council, Jill Anderson, who requested the £213.20 donation went to CRY.

Mrs J Taylor forwarded a donation of £300 from the Darrington Church Sunday and Monday morning coffee groups.

Sophie Thomas cut her hair short and raised £120.

Susan Thomas took part in the 3 Peaks Challenge and raised £548.

Lauren Tilbrook sent in £125.

The Health and Wellbeing team at Torison for 2019 encouraged everyone to walk more and raised £250.

Glenn Trafford sent in £242 via Virgin Money Giving which was raised through taking part in the Thorpe Park Half Marathon.

The Prebendal School raised a total of £2,475.29.

Prior’s Mill C.E. Primary School sent in £480.05 raised by their Year 6 pupils through a cake sale and sponsored fun run.

Louise Rees sent in £100 in appreciation of her children’s screening.

Wayne Rogers fowarded £364 raised at The Biddulph Festival 2018.

Emily Rosie sent in £220 raised in lieu of gifts for her 80th birthday.

The Rotary Club of Langley Park donated £500.

Gary Rowe at Pallet Plus Ltd nominated CRY to receive a donation of £500 from a lottery draw.

Sainsbury’s Blackwood chose CRY as their charity of the year and raised £3,705.02.

www.c-r-y.org.uk

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General Fundraising •

Begbies Traynor took part in a walk and cycling event and raised £680.18.

The Union of Catholic Mothers sent in £1,365.96 following a talk from CRY Representative Roger Maddams.

University of Essex Students Union sent in £234.93.

University of Sheffield Students Union sent in £116.04.

Thomas Upritchard and Team DS Smith Graduates and Key Developers took part in a Tough Mudder and raised £200.65.

Tom Vinall chose CRY as the charity to benefit from his 12-hour cardio tennis-a-thon and raised £505.64, with the support of the Atlantic Racquet Centre.

Bernadette Washer donated £100.

Walthamstow Hall Junior School organised a charity fiesta day and raised £205.

The Walton May Pageant donated £100.

Richard Watts sent in £100 raised from his Kilimanjaro Trek.

Callum West took part in the Surrey Half Marathon and raised £500.

Jason Whittenham held a BBQ and Mexican party and raised £135.

Wendy Wilson donated £100.

Colin Woolway sent in a further £570, making a total of £4,187 raised from his Birthday Bash.

The Worshipful Company of Gold and Silver Wyre Drawers sent in £15,000 raised from their 6 Nations Rugby Lunch event.

in promoting the status and the image of the City. It also provides a link to the modern usage of gold and silver wire and thread. Malcolm learnt about CRY through Jason Leonard OBE (right) reading Simon Halliday’s book ‘City Centre’ (below) and chose CRY as well as BLESMA to be supported at this fundraiser. “It was a real privilege to be given the opportunity to speak at this event with more than 300 people in attendance. After the event I was approached by a number of people in the audience who had also been affected by young sudden cardiac death. This included one person on a table who shared with their colleagues how their child had died suddenly, something they had never shared with the colleagues before. I was also approached by another person whose friend’s son had died suddenly of a cardiac condition. As I am sure many of our supporters are aware, so often it is only when you talk at an event that you find how many people are affected and suffer in silence.

By CRY Chief Executive Dr Steven Cox: “On March 15th, Malcolm Craig, the 2019 Master of The Worshipful Company of Gold and Silver Wyre Drawers, chose CRY to be one of the charities supported at their 6 Nations Rugby Lunch. Jason Leonard OBE was the guest speaker at the event and Malcolm invited CRY Patron Simon Halliday and I to represent CRY. “The Worshipful Company of Gold and Silver Wyre Drawers maintains the traditions and customs of the City of London and supports the Lord Mayor and Corporation

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CRY Patron Simon Halliday (left)

“£15,000 was raised for CRY during the lunch and I would like to thank Malcom for choosing CRY, and for all those who supported the event and Simon Halliday for continually raising awareness of CRY and the impact young sudden cardiac deaths have on so many people every year.”

Issue 79 | May to August 2019


Raising Awareness in the Media Report Between May and August CRY featured in 276 print articles, including 6 national articles and 25 magazine articles. CRY also featured in 283 online articles.

Headlines from May to August in the press... ‘Women’s stories deserve to be heard’ The Times England Women’s footballer and CRY Ambassador Jade Moore had a routine cardiac screening when she was 17, which found two holes in her heart and ultimately saved her life after surgery. Published 31 May 2019

‘Dad’s charity ride for tragic lads: I’ll go 500 miles for my 2 boys’ The Sun (Scotland) Graeme Stewart cycled from London to Glasgow in memory of his sons – Lewis, who died last year, and Dexter, who died seven years ago. Lewis died due to a previously undiagnosed heart condition. Published 9 June 2019

‘My fiancée dropped dead on holiday’ The Sun Ben Fitzgerald suddenly lost his fiancée, Emma, aged just 35, during a holiday. This article provided a link to CRY for readers to get more information on cardiac conditions and support. Published 30 June 2019

Online... ‘Why do the young and healthy sometimes drop dead?’ New Statesman, 3 July 2019 This article looked at young sudden cardiac death and referred to CRY’s work when discussing how valuable screening is. Read online at https://bit.ly/2lCd1Ei

‘Tragic death of young Edinburgh cyclist leads dad and friend on epic challenge’ Edinburgh Evening News, 9 July 2019 Keith Forsyth and Hamish Carrick completed their own version of the Three Peaks Challenge in memory of Keith’s son, Ben. Read online at https://bit.ly/33pCm5z

‘Mother, 29, dies of a cardiac arrest in her sleep as her heartbroken family claim she “would still be here” if she had been given a simple heart screening’ Daily Mail, 20 August 2019 CRY Chief Executive Dr Steven Cox commented on our efforts to prevent more tragedies following the sudden death of Fiona Tucker. Read online at https://dailym.ai/2PLwwY4

For links to online, press, television and radio coverage related to CRY and young sudden cardiac death visit www.c-r-y.org.uk/inthemedia www.c-r-y.org.uk

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Fundraising Events 2020 Please contact the fundraising team on 01737 363222 or email events@c-r-y.org.uk if you are interested in any of the following events. For more information and a full list of events visit www.c-r-y.org.uk/category/upcomingcryevents All participants in mass-participation events who contact the CRY fundraising team (whether they have their own place or a CRY charity place) will receive a welcome pack containing sponsor forms, information, helpful tips and either a T-shirt or vest (depending on the type of event).

Rough Runner

London 10,000

Rough Runner is an obstacle course like no other; combining distance running (5km, 10km and 15km) with a variety of obstacles along the way, inspired by game shows.

Starting and finishing in St. James’s Park, runners will enjoy the sights of the city and pass some of London’s most iconic landmarks, including Nelson’s Column, St Paul’s Cathedral and Big Ben.

Parachute Jumps

CRY Heart of London Bridges Walk

Throughout 2020

Assorted dates

Trek Kilimanjaro

Assorted dates, 2020 Kilimanjaro is the highest mountain on the African continent at 5,896m. Its snow-capped summit rises high above the dusty African plains. Spectacular views and beautiful ice formations are the reward for pushing your limits.

London Landmarks Half Marathon March 29

Celebrate London’s history and cultural heritage while discovering the city’s quirky and hidden secrets! Runners explore the capital through the City of London and City of Westminster!

ASICS Greater Manchester Marathon April 5

Many regular runners find this the ideal event to get a personal best time, whilst everybody finds the incredible Mancunian support throughout the course unforgettable.

Virgin Money London Marathon April 26

CRY always has a limited number of charity places available for this event, but these have already been allocated as demand always exceeds the number of places available.

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May 25

June 28

CRY’s flagship event is a 5.5-mile walk through central London, crossing some of the famous bridges and passing iconic landmarks. Join us after for the CRY Family Picnic to connect and remember.

Prudential RideLondon-Surrey 46 and 100

August 16

The event comprises of a 100-mile or a 46-mile cycle route on closed roads through the capital into Surrey’s countryside.

Simplyhealth Great North Run September 13

This is the world’s leading half marathon. The 13.1-mile course runs from Newcastle upon Tyne to South Shields and attracts many world-class athletes.

CRY Heart of Durham Walk

October 3 - TBC

The 5-mile route starts and ends at Durham Amateur Rowing Club and passes along the River Wear and through the beautiful city of Durham. The walk is suitable for all.

Royal Parks Half Marathon October 11

This stunning central London half marathon takes in the capital’s world-

famous landmarks on closed roads, and four of London’s eight Royal Parks – Hyde Park, The Green Park, St James’s Park and Kensington Gardens.

Cardiff Half Marathon October 4

The Cardiff University/Cardiff Half Marathon has grown into one of the most exciting road races in the UK. It is now one of Europe’s largest half marathons and is Wales’ largest mass participation and multi-charity fundraising event.

Big Heart Bike Ride 6-14 November

Join the next Big Heart Bike Ride in South Africa for a 400km cycle along the world-renowned Garden Route. You will kick off this cycle challenge in the wonderful lagoon town of Brenton-onSea, alongside rivers, farmland, rustic villages and even a game reserve.

CRY Raising Awareness Week November 14-22

Get your family, friends, colleagues and children involved in various events to raise awareness of CRY!

CRY Great Cake Bake November 20

This is a fun and simple way to get involved in Raising Awareness Week. Get your family, friends, colleagues and children involved in baking, eating and raising money for CRY.

Santa Run December 8

With a 5k or 10k course, this is London’s most popular Santa Run. Bring a flash of red to the streets of London with thousands of runners dressed as Santa Claus to spread festive fun.

Issue 79 | May to August 2019


CRY Update 79 May to August 2019 Our Fundraisers By fundraising for CRY you will be helping to: • subsidise CRY’s national cardiac screening programme • fund CRY’s bereavement support programme to provide counselling and support to affected families • support research into young sudden cardiac death (YSCD) • develop the myheart Network to support young people living with cardiac conditions • provide all CRY literature and information free of charge • develop the CRY Centre for Cardiac Pathology (CRY CCP), and the CRY Centre for Inherited Cardiovascular Conditions and Sports Cardiology

The involvement of our fundraisers has been crucial to helping CRY raise awareness about YSCD. Whether you are carrying out your own activity or taking part in an organised event such as the London Marathon or the Great North Run, remember that CRY will always support your effort with posters, sponsor forms and other resources. If you would like to join our fundraisers, CRY also offers a range of fundraising challenge events, including parachute jumps, white water rafting and a selection of trekking and cycling events.

For further information please call the CRY office on 01737 363222 or visit www.c-r-y.org.uk/donations All your help is greatly appreciated.

Visit www.c-r-y.org.uk/charityfundraising-challenge-events for more information or contact the CRY office for a fundraising ideas pack.

Our Patrons

Our Mailings

The urgency of CRY’s mission and the quality of our work has compelled many high-profile personalities to give their time to become CRY Patrons. For more information visit www.c-r-y.org.uk/about-us/patrons

Sir Ian Botham OBE

Honorary President of CRY “It is not just athletes who are at risk of these heart disorders – it can happen to anyone. The problem has been swept under the carpet for too long and there have been too many excuses. I am a parent and a grandparent and I want to know that my kids and grandkids will be screened as a matter of course. It’s the only way we can prevent these sudden deaths occurring.”

Current Patrons of CRY: Rob Andrew MBE • John Barrowman MBE • Jeremy Bates • Ben Brown • Clive Clarke • Jack Clifford • James Cracknell OBE • Nick Easter • Jonny Evans • Baroness Ilora Finlay • Simon Halliday • Kathryn Harries • Michael Hoey • John Inverdale • Tom James MBE • Pat Jennings OBE KSG • Rob Key • Gary Longwell • Pixie Lott • Emily Maitlis • Graeme McDowell MBE • Lee Mears • Bill Neely • Lawrence Okoye • Phil Packer MBE • Sir Steve Redgrave CBE • Vincent Regan • Joe Root • Andy Scott • Roger Taylor MBE • Professor Gaetano Thiene • Gregor Townsend MBE • Andrew Triggs-Hodge MBE • Andrew Trimble • David Walliams • Alison Waters • Matt Wells • Sir Clive Woodward OBE

www.c-r-y.org.uk

There are many different ways you can donate to CRY. Online and cheque donations are the most popular methods, and we also accept credit/debit card donations over the phone.

1. CRY Update magazine Postal mailing of CRY’s regular (three issues a year) news and events magazine. Includes reports from the CRY CEO and Founder; supporters’ fundraising; articles about screening, myheart, research, pathology, raising awareness initiatives, massparticipation fundraising events; and much more.

2. CRY enewsletter Monthly email newsletter; 3 emails per year with links to the online version of the Update magazine; plus occasional emails about major CRY events and initiatives. If you would like to subscribe to – or unsubscribe from – either of these mailing lists, please let us know: • Complete the online form; www.c-r-y.org.uk/subscribe • Call the CRY office; 01737 363222 • Email the CRY office; cry@c-r-y.org.uk

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Our Mission When Cardiac Risk in the Young (CRY) was founded in 1995 it was the first organisation to draw attention to the range of conditions that can cause young sudden cardiac death (YSCD). Every week in the UK at least 12 apparently fit and healthy young people die of undiagnosed heart conditions. These conditions include hypertrophic cardiomyopathy (HCM) and other diseases of the heart muscle, as well as electrical heart disorders which can lead to sudden arrhythmic death syndrome (SADS). CRY aims to reduce the frequency of YSCD through raising awareness amongst the general public and medical community, providing expert cardiac pathology, improving early diagnosis through screening, supporting young people diagnosed and funding research. 1 in 300 young people CRY tests will have a potentially lifethreatening heart condition. CRY believes cardiac screening should be available to all young people aged between 14 and 35.

Registered Charity No. 1050845

CRY also works to guide and support families and close friends affected by YSCD. We provide information to explain what the coroner does, bereavement support, help with NHS referrals and advice on the procedures that usually follow a YSCD. In 80% of cases of young sudden cardiac death there are no prior

We are very proud that over 80p in every £1 we spend goes into supporting CRY’s key aims. Without the fantastic support we receive this wouldn’t be possible.

symptoms of a heart defect. CRY publishes a range of medical information written by leading cardiologists that is easy to understand and made available to the public free of charge. For detailed information about cardiac conditions and CRY’s range of literature visit www.c-r-y.org.uk/ medical-information

Fundraising Awareness 15.2% Governance 14.3% 2.2% Support 8.2%

Screening 37%

Research 23.1%

CRY is grateful for grants or donations from trusts and foundations. We would like to thank the following for the generous support they have given us:

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A & R Woolf Charitable Trust • Aubrey Orchard-Lisle Charitable Trust • The Brian Shaw Memorial Trust • Borrows Charitable Trust • The Cantiacorum Foundation • Carval Foundation • The Charles Wolfson Charitable Trust • Childwick Trust • CMS Cameron McKenna Foundation • Cosaraf Foundation • Doris Field Charitable Trust • The Edith Murphy Foundation • G C Gibson Charitable Trust • G M Morrison Charitable Trust • Gawthorn Cardiac Trust • James Tudor Foundation • The Joyce Kathleen Stirrup Charitable Trust • The Lady Forester Trust • Leathersellers’ Company Charitable Fund • The Mabel Harper Charitable Trust • The May Gibson Charitable Trust • The Oliver Stanley Charitable Trust • The Rachel & David Barnett Charitable Trust • The Samuel Storey Family Charitable Trust • The Schroder Charity Trust • Sir John Sumner’s Trust • St Christopher Health Fund • The Stanley Grundy Foundation • Tudor Foundation Inc • Vernon N Ely Charitable Trust

Tel: 01737 363222 Fax: 01737 363444 Email: cry@c-r-y.org.uk

Visit our websites: www.c-r-y.org.uk www.sads.org.uk

CardiacRiskintheYoung CardiacRiskintheYoung @CRY_UK

Profile for Cardiac Risk in the Young

Update Magazine Issue 79  

Update Magazine Issue 79