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Cardiac Risk in the Young News and Events | Raising Awareness | Our Fundraisers

Update 65 | September to December 2014

In this

Newsletter Miccoli Hit the Malls Tour

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CRY International Conference 2014 | 19 Bupa Great North Run 2014

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CRY Durham Riverside Walk 2014

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Sure Run to the Beat 10K

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CRY Great Cake Bake 2014

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CRY Parliamentary Reception 2014 | 32

Tel: 01737 363222 Fax: 01737 363444 Email: cry@c-r-y.org.uk

visit our websites: www.c-r-y.org.uk www.sads.org.uk

@CRY_UK

/CardiacRiskintheYoung


CRY Update 65 September to December 2014 Editor Alison Cox MBE

Founder and Chief Executive

Deputy Editor James Slade

Newsletter Coordinator

As Deputy Editor of the Update it is my responsibility to put together this newsletter, and it is my ambition that you should find all the CRY news, events and fundraising in the following pages to be of interest. I always endeavour to ensure the information printed in this newsletter is accurate, but please do not hesitate to get in touch with me if you notice something amiss. CRY receives an incredible amount of support and I know occasionally an error will slip through, however any fundraising corrections will be clearly demarcated at the beginning of the subsequent issue’s fundraising section. I would much appreciate hearing from you at james@c-r-y.org.uk or on 01737 363222 if you have any feedback or comments regarding previous issues. Thank you for your help.

Contributors Dr Steve Cox

Deputy Chief Executive

Professor Mary Consultant Cardiac Sheppard Pathologist Rebecca Zouvani

Meet our County Representatives News from the Chief Executive Extra CRY News Newsletter from the Deputy Chief Executive CRY Screening Report myheart News Report from the CRY Centre for Cardiac Pathology (CRY CCP) Research News Bupa Great North Run 2014 CRY Durham Riverside Walk 2014 Sure Run to the Beat 10K CRY Great Cake Bake 2014 CRY Parliamentary Reception 2014 Our Fundraisers Raising Awareness in the Media Fundraising Events 2015

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Fundraising Manager

Head office: Unit 1140B The Axis Centre, Cleeve Road, Leatherhead, KT22 7RD Submission guidelines: We include activities in the “Our Fundraisers” section that raise £100 or more. If you could supply a write-up or photos for any fundraising activities that you have taken part in, please email the deputy editor at james@c-r-y.org.uk. Entries appear in the “Our Fundraisers” section according to when CRY sends official receipt of monies raised. Articles can only appear in the “Raising Awareness in the Media” section if we receive permission from the publishers to reproduce the article. Images of CRY Patrons and Members of Parliament throughout have been highlighted in red. No part of this publication may be reproduced, stored in a retrieval system or transmitted in any form or by any means; electronic, mechanical, photocopying, recording or otherwise, without prior permission of the Editor. The Editor and Committee welcome letters but reserve the right to edit when necessary and to withhold publication. Any opinion or statement by the author of any article or letter published does not necessarily represent the opinion of the Editor or Officers of the Committee. Articles pertaining to health related topics are for information only. Readers should obtain advice from their own practitioner before attempting to diagnose or administer any medication. Mention of any products or procedure should not be considered an endorsement for said product or procedure.

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Inside Update 65

On the cover – for more details regarding the events shown, please turn to the corresponding page references below. Images are listed clockwise from top left: • myheart member Joseph Tanner, former CRY staff Kylie Wroe and Team Alive take part in the Spartan Beast challenge, page 104 • Liz Biles presents the Palmer Snell Cup for a rugby tournament in memory of her son, Maxwell Biles, page 39 • Miccoli tour 12 shopping centres over 12 weekends across the UK, page 16 • Milton Keynes ice hockey teams compete in a 24 hour match in memory of Kris Ledgard, page 67 • CRY Great Cake Bake 2014, page 28 • CRY Parliamentary Reception 2014, page 32 • CRY Patron Ben Brown runs the Royal Parks Foundation Half Marathon in memory of Tom Clabburn, page 5 • CRY Durham Riverside Walk 2014, page 24 • Roger Maddams takes part in Heart FM’s Bike Some Noise and an interview with Jamie Theakston and Emma Bunton, page 4 • Pete Hinchliffe Award recipient Dr Sabiha Gati gives her presentation at the CRY International Conference 2014, page 19 • The MO Team climb Snowdon and organise the Scarlet Masquerade Ball in memory of Nathan Butler and Jon Haynes, page 43 • Chris Key, UK director of Les Misérable, stages the third Les Mis v Phantom of the Opera football match in memory of Lewis Marsh, page 71 • Cinematic CRY film launched online, on Sky Sports and on social media, page 10

Issue 65 | September to December 2014


Meet Our County Representatives Our daughter Laura died suddenly in 2003 aged 21 years. It was two years later that we found CRY. Since then we have raised money regularly for Laura’s memorial fund. Joan has been a Bereavement Supporter since 2006; Tony has spoken at several annual CRY Conferences and contributed to the CRY booklets “A Father’s Grief”, and “The Role of the Pathologist”. We have both spoken on local radio and appeared on local TV in support of CRY, but these have been on an informal and occasional footing.

Tony and Joan Hillier County Representatives for Northamptonshire

By becoming County Representatives we have expanded our role for CRY in a more extensive, useful and formal way.

News from the Chief Executive in an astonishing 258th place from 56,000 runners.

Alison Cox (MBE) CRY Founder & Chief Executive

September Over 50 CRY runners at the Bupa Great North Run September 7 Congratulations to all the CRY runners who took part in the popular half marathon, we are most grateful for your efforts to raise awareness and funds at this huge event – well done to everyone! The temperature was warmer than in recent years and a bright day only heightened the remarkable atmosphere at the event. Our Patron Matt Wells was one of the 51 CRY runners, and though taking part in his first half marathon finished

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For more details and photos from the event please see the article or visit www.c-r-y.org.uk/bupa-great-northrun-2014

Joe Root announced as CRY Patron September 11 I was delighted to welcome young England and Yorkshire cricketer Joe Root as an official Patron in September, but in fact his involvement with us goes back much further. Joe became involved with CRY following the tragic death of Alex Reid, from his hometown of Sheffield, in 2012. He wore a CRY wristband during his successful Ashes in the summer of 2013, and then attended the “Alex: Ever After” ball as a special guest later that year – modelling an Ashes 2013 jersey signed by the England cricket squad to auction at the event.

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News from the Chief Executive Joe said: “I am delighted and honoured to have become a CRY Patron as I have been aware of CRY since my friend, Alex Reid [pictured], died suddenly of a cardiac arrest in June 2012, when she was only 16. I have supported several CRY fundraising events organised in memory of Alex and want to do whatever I can to help raise awareness of the crucial work CRY do.”

Unum heritage weekend September 13 − 14 As Unum’s national charity partner, CRY was invited to hold an awareness stand and take a share of the proceeds when the insurance provider opened the doors of Milton Court, where the hub of the company is based, to the general public. The beautiful Grade II listed building in Dorking was built in the 17th century and Unum welcomed visitors over the weekend to take a “mile walk” through the house and grounds of their UK headquarters. Proceeds from refreshments served over the weekend were shared between Unum’s regional charity partner, St Catherine’s Hospice, and CRY. Our volunteers Nigel Bennett, Rosemary and Graeme Attridge and staff Lesley Dallow, Ben Robinson and Rebecca Zouvani helped to raise awareness of our work throughout and the weekend gave us another welcome opportunity to meet with Unum staff at the event.

CRY infographic launched to raise awareness September 14 An animated CRY “infographic”, an illustration designed to communicate key information in an attractive format, was

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widely promoted online in the weeks leading up to its launch on Sunday 14 September. The animation generated interest from hundreds of followers wanting to show their support for the work that CRY funds, helping to spread the reach of the message to nearly 1.5 million people on the day of the launch. Special thanks to Patron Graeme McDowell, who shared the infographic with his 600,000 Twitter followers. We hope the video will continue to raise awareness; you will find it at www.c-r-y.org.uk/raising-awareness

October Nearly 300 take part in Durham Riverside Walk October 4 An astonishing 286 participants walked in Durham on 4 October 2014 – an increase of over 20% from the previous year, for the second year in a row! A big thank you to everyone who took part. Jeff Morland and Steve Percival were, as always, hugely helpful in organising the event. Their input is crucial to making it happen! The year-on-year growth, so far from our office, is a great reflection of the dedication of our team of regular Durham volunteers. For more details and photos from the event please see the article or visit www.c-r-y.org.uk/cry-durham-riversidewalk-2014

Roger Maddams takes part in Heart FM’s Bike Some Noise October 9 At very short notice from the organisers, supporter Roger Maddams (a great cyclist!) was delighted to participate in radio station Heart FM’s “Bike Some Noise” challenge. This was part of a bigger charity initiative instigated by Heart’s parent company, Global Radio, called “Make Some Noise Day”, for which we were chosen as one of the beneficiaries.

Issue 65 | September to December 2014


News from the Chief Executive In addition, myheart Consultant Cardiologist Dr Michael Papadakis – who is instrumental in organising the annual conference – and 11 current and former CRY Research Fellows presented their latest research. Professor Sharma also announced Dr Sabiha Gati as winner of the annual Pete Hinchliffe Travel Award for Medics in recognition of her exceptional achievements as a CRY Fellow in 2013.

Roger Maddams with Heart FM presenters Emma Bunton and Jamie Theakston

Five stationary bikes were set up on the roof of Global Radio HQ in London, and cycling fundraisers including Roger, David Kaluwahandi, Christian Barnes and Suzanne Gallagher helped power the mileage to 874 miles, the distance between Land’s End and John O’Groats, in just nine hours. Roger did a terrific job of raising awareness of CRY on the day through his radio interview with Jamie Theakston and Emma Bunton on Heart FM, telling the story of how his son Jack (pictured) died in his sleep just before his 18th birthday in March 2008. Roger explained how the money for our heart screening programme is raised through supporters like himself, and that he knew of at least three cases where potentially life-threatening conditions were detected in young people at screenings he had raised funds for.

CRY International Medical Conference October 10 Every year, our conference draws together experts in the fields of sports cardiology, inherited cardiac diseases and young sudden cardiac death. In 2014, a one day conference at the Cavendish Centre in London featured the expertise of internationally renowned cardiologists Professor Sanjay Sharma (UK), Professor Domenico Corrado (Italy), Professor Christine Lawless (USA), Professor François Carré (France), Professor Hein Heidbüchel (Belgium) and Professor Mats Borjesson (Sweden). Dr Andrew Cox also presented encouraging early results from the prospective cardiac screening programme for the British Army, which features universal ECG screening for potential recruits for the first time.

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From left to right: Professor Sanjay Sharma, Professor Domenico Corrado, Dr Michael Papadakis and Professor Mats Borjesson

Presentations will soon be available at www.c-r-y.org. uk/cry-international-conference and we were delighted that they were selected to form part of the courses hosted on the European Society of Cardiology e-learning platform (ESCeL). For more information, please turn to Research News.

Ben Brown runs Royal Parks Half Marathon for CRY October 12 BBC correspondent, presenter and CRY Patron Ben Brown ran in the Royal Parks Foundation Half Marathon for us in memory of Tom Clabburn (pictured below). Tom died in his sleep aged 14 in October 2007. Ben said: “It was wonderful to be able to run my very first half marathon for CRY and in the memory of Tom Clabburn – son of my friends Claire and Paul – who tragically died seven years ago. I’m thrilled to have raised more than a thousand pounds for CRY in his name and to have run it in a decent 1:49:21 – the weather was kind, the route was beautiful and the training kicked in!”

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News from the Chief Executive Dr Steve Cox talks to the Daily Mail following the death of Melissa Smith October 20 Melissa Smith suddenly collapsed playing under-16s football in Lancashire on 19 October 2014. Club staff reacted quickly to use CPR and a defibrillator but the 15-year-old could not be resuscitated. The next day, the Daily Mail contacted CRY Deputy CEO Dr Steve Cox for information about screening for heart conditions in young people. Steve highlighted that in Italy, where there is mandatory heart screening for young athletes, there has been an 89% reduction in sudden deaths. He went on to acknowledge defibrillators as an important reactionary measure to a sudden cardiac arrest, but emphasised, “It’s not the answer to saving young people’s lives.” He explained: “We need to identify the problems before then and can help by prescribing certain drugs, or warning off certain medication. We are very passionate about the idea that all young people from 14 onwards are offered the chance to be tested and it’s even more important if they are involved in sport.”

Tom James returns to Trinity Hall for charity ergothon October 25 Double Olympic gold medallist and CRY Patron Tom James MBE returned to Trinity Hall, Cambridge University – where he studied from from 2002 to 2007 – to help launch a 25 hour row. The “ergothon” was organised to raise money for CRY and for the refurbishment of the boathouse.

November Beefy’s Charity Foundation at Living North Christmas Fair November 6 − 9 Cara MacMillan and Sam Walker travelled up to Newcastle to raise awareness at an initiative supported by our Honorary President Sir Ian “Beefy” Botham OBE at a Christmas fair held by magazine Living North. Cara, CRY Events Fundraiser, reported: “Living North chose Beefy’s Foundation as the charity for their annual Christmas fair at Newcastle Racecourse, which meant each of the five charities supported by Beefy’s Foundation could have a stand throughout the event – from Thursday 6 November to Sunday 9 November. Both myself and Sam attended from the CRY office; with Representatives Kenny and Maralyn Bowen; and volunteers Tina MacMillan (my mum), Linda Smith and Elaine Spence. Sir Ian Botham visited on the Sunday and took part in a cooking demonstration, making a burger! It was a great event and a fabulous opportunity to raise funds through the selling of our merchandise and donations, and to raise awareness of CRY to a brand new audience.”

South Regional Bereavement Support Day November 25 The South Regional Bereavement Support Day was held on 15 November 2014 at Wimbledon Park Golf Club and 18 people registered to attend. Bereavement Supporters Linda Goodwin, Ruth Lowe, Carly Sykes-Blowers, Katherine McNamara, Sarah Willis, Sian Regan and Stephanie Paterson (pictured) led the groups.

Tom joined more than 75 rowers for a turn on the indoor rowing machines, and they managed to row a staggering 650km over the 25 hours and raised over £2,500. Tom said of the event: “Through sport in particular, CRY has built many successful bridges to bring awareness and support to its causes. The Trinity Hall Boat Club ergothon is just such an event.”

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Issue 65 | September to December 2014


News from the Chief Executive CRY official charity of the British Plus Size Awards 2014 November 22

Over £20,000 raised by the CRY Great Cake Bake November 15 Since 2012, the CRY Great Cake Bake has become an established feature of our Raising Awareness Week and the event appears to have become a firm favourite of our supporters, with donations still coming in and dozens of fantastic photos from coffee and cake mornings, raffles and bake sales across the country. A very special thank you to everyone who took part in organising such a successful national event. Our annual recipe book took on an international flavour in 2014; top cooks who gave us permission to reproduce their recipes included Rachel Khoo, Anjum Anand, Levi Roots and Ching He Huang. Ariana Bundy generously donated two signed copies of her cookbook “Pomegranates and Roses” in addition to her recipe, which gave us the opportunity to run a special competition for our supporters – please turn to the article or visit www.c-r-y. org.uk/cry-great-cake-bake-2014 for more details.

McColl’s TreatCRY initiative raises over £170,000 October – November 21 This fundraising has had a special significance for McColl’s as Chairman and CEO James Lancaster lost his son Robert (pictured) to sudden cardiac death in 2007. He was 21 years old. After his death the Lancaster family offered their support to CRY; James was a CRY Trustee from 2009 to 2014.

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We were announced as the official charity of the British Plus Size Awards 2014 – receiving a percentage of ticket sales and our literature available at the red carpet awards ceremony. We were most grateful to our Patron Ben Brown for attending and giving his time to present an award. Linda Koch, CEO and Founder of UK Plus Size Events, said: “This is a charity that is extremely close to my heart. We strongly believe that raising awareness of cardiac risk in the young will not only help raise awareness for the charity, but hopefully save lives. I feel honoured to be able to help such a worthy cause.”

Rich Fell interviewed on Estuary TV November 24 Hugh Riches of Estuary TV News interviewed Rich Fell, our Representative for East Yorkshire, about the sudden death of his 15-yearold son Josh (pictured) in June 2011 and Rich’s tremendous commitment to CRY following the tragedy. Rich discussed his attendance at the 2014 CRY Parliamentary Reception later that week, the lobbying of MPs to make heart screening available to more young people, and he also described his fundraising with Hull City FC – Josh’s favourite team. This included a football match in Josh’s memory featuring well-known ex-Hull players in December and a charity wristband promoted and sold by the official supporters’ club. The wristband has been worn by several notable personalities, including ex-Hull player Jimmy Bullard, who had just returned from his appearance in ITV’s “I’m a Celebrity, Get Me Out of Here!”. To watch Rich’s interview, please go to www.c-r-y.org.uk/crysupporter-richard-fell-talks-losing-son-josh-sads-640-1335

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News from the Chief Executive Interview regarding CRY film on PoliticsHome November 26 On the morning of November 26 an interview with me was published by PoliticsHome regarding the Parliamentary Reception and CRY film to be launched later that evening to raise awareness of young sudden cardiac death (YSCD). I used this opportunity to emphasise the key message that in 80–90% of cases there are no symptoms before the cardiac arrest of a young person with a hidden heart condition. Our aim for the film is to raise awareness of how sudden and unexpected these deaths are and to reach as wide an audience – particularly of young people – as possible. We also hoped that this film would encourage young people to take advantage of our screening programmes across the UK. We want the film to encourage young people to get their hearts checked and understand that these deaths are preventable. The interview was promoted by PoliticsHome on Twitter and featured on the front page as one of the key political developments of the day.

A still from the CRY film launched on November 26

Linda Marsden and myself interviewed on BBC Radio Devon November 26 Supporter Linda Marsden was interviewed by reporter Sophie Pierce for BBC Radio Devon about the death of her son Ollie (pictured) aged 21 in October 2008. Like many of those affected, and as shown on the film launched that evening in the House of Commons, Ollie collapsed while playing sport.

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Linda went on to describe the work that we do and our national screening programme. Linda has organised a screening in memory of Ollie from 12–13 March 2016 at Leatside Surgery, Totnes, having held several in the area since 2012. Linda’s segment was followed by a later interview with myself, in which I described the circumstances by which my son Steve (now Deputy CEO) was screened for the first time aged 18 in the US and found to have an abnormal ECG – the indicator of an undetected and potentially lifethreatening heart condition – and explained that whilst there are usually no symptoms, serious alarm bells include sudden black-outs or “dead faints” and a family history of unaccountable young sudden deaths.

ITV Central News report on CRY film with Dewhirst family November 26 Our film continued to gain media traction the day of its launch with a special evening report from ITV News showing clips from the video and featuring an interview with Chris and Sue Dewhirst, whose son Matthew (pictured), aged 17, tragically died in 2012 while playing rugby. Unlike the majority of cases, Matthew had symptoms for eight years prior to his cardiac arrest – but as Sue and Chris described in the report, a lack of awareness meant that his condition was repeatedly dismissed by doctors as stress or dehydration and remained undiagnosed. Kevan Jones, Labour MP for North Durham and Chairman of the Cardiac Risk in the Young All Party Parliamentary Group (CRY APPG), also spoke to ITV in the report, emphasising that 12 young people a week die and that cardiac screening is the key preventative measure for reducing these tragedies. The ITV report is available at www.itv.com/news/central/ update/2014-11-26/sudden-cardiac-death-compellingnew-video-released

CRY film launched at Parliamentary Reception November 26 As part of CRY Awareness Week, we held our annual

Issue 65 | September to December 2014


News from the Chief Executive Parliamentary Reception in the Terrace Marquee at Westminster. The evening was hosted by Kevan Jones MP, Chairman of the Cardiac Risk in the Young All Party Parliamentary Group (CRY APPG), Sir Roger Gale MP and John Pugh MP, and we were pleased that 21 MPs attended. CRY Chairman Hugh Mulcahey was MC for the evening and introduced the speakers: CRY Patrons Baroness Ilora Finlay and Lee Mears; David Lynch, BBH London Associate Producer; Kevan Jones MP, CRY APPG Chairman; Professor Sanjay Sharma, CRY Consultant Cardiologist; Sue Dewhirst, CRY Representative; and myself.

supported by his internationally renowned agency Bartle Bogle Hegarty (BBH), which was the focus of the Parliamentary Reception this year. He explained how the project came to fruition – everyone was stunned by the results of his endeavour. Sue Dewhirst, whose 17-year-old son Matthew died playing rugby in similar circumstances to the young man in David’s script, said at the event, “This film informs and it empowers you about young sudden cardiac death, screening and the work of CRY,” adding, “It’s a really powerful tool for Cardiac Risk in the Young and one that I hope we can all use to get the message out there.” We are greatly indebted to BBH for producing and donating this dramatic and compelling film. We could never have funded such an ambitious project, which was the result of David’s initiative and will reach out to a new and largely uninformed audience. For more details of the new CRY film, please see Extra CRY News. For more details and photos from the 2014 Parliamentary Reception, please turn to the article.

Professor Sanjay Sharma wins Medical category at the Asian Professional Awards November 27 I was very proud to learn that our Consultant Cardiologist Professor Sanjay Sharma won the Medical category at the inaugural Asian Professional Awards.

From left to right: CRY Chairman Hugh Mulcahey, Kevan Jones MP, CRY Patron Baroness Ilora Finlay, David Lynch, CRY Patron Lee Mears, CRY Representative Sue Dewhirst and Professor Sanjay Sharma

During my speech, I was delighted to be able to present Mike Gapes MP, who spoke at last year’s Parliamentary Reception, with a painting by artist John Bennett – who paints in memory of his daughter, Laura. Mike’s daughter Rebecca died suddenly, aged 19, in 2012 and he has since then been a stalwart supporter of CRY. Lee spoke candidly of his forced retirement from rugby in 2013 following the diagnosis of a life-threatening heart condition and pressed for screening Mike Gapes MP and myself youngsters, particularly in grass-roots sports. Other Patrons who came were Pat Jennings OBE KSG, Simon Halliday, Alison Waters, Andy Scott, Jeremy Bates and Phil Packer MBE. David Lynch wrote and produced the new CRY film,

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Without Sanjay’s specialist help and advice, leadership, ongoing commitment, and above all, the donation of his time to CRY, our pioneering cardiac screening programme would never have been able to progress. We owe a great deal to Sanjay and it is fantastic that his achievements in the fields of sports cardiology and inherited cardiovascular conditions are starting to be recognised.

December Lee Mears speaks to BBC Radio Wiltshire December 4 Our new Patron Lee Mears was interviewed by BBC Radio Wiltshire regarding his sudden retirement from rugby following his diagnosis with a previously undetected cardiac condition and his support for CRY.

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News from the Chief Executive Lee spoke in a recorded interview about his shock at the news and subsequent determination to raise awareness, including giving a speech at our Parliamentary Reception and having the chance to endorse the rugby film campaign. Lee greatly helped to promote this through writing an open letter to editors of regional newspapers urging attention to be paid to the dangers of potentially life-threatening heart disorders and the availability of screening through our national programme.

Extra CRY News CRY film launched at Parliamentary Reception During CRY’s annual Raising Awareness Week, a new campaign was unveiled to demonstrate the sudden, spontaneous and shocking nature of young sudden cardiac death (YSCD). The film follows a teenage boy on the rugby pitch in the moments leading up to his sudden collapse on the field in front of team-mates and supporters.

CRY Christmas Message December 19 This year’s Christmas message for all of our supporters and families was recorded and published across social media in December. In the video, myself and Deputy CEO Dr Steve Cox describe the progress made in 2014 in our efforts to support those affected by young sudden cardiac death (YSCD) and reduce its incidence across the UK. Over the course of 2014, significant strides have been made in research, screening and raising awareness, and I would like to take the opportunity to thank you all for your fantastic support throughout the year. Without you, we would not be able to achieve what we have. To view our Christmas message, please visit www.c-r-y.org. uk/christmas-message-2014

The high-impact film was designed to demand the attention of those who were not aware of YSCD and was developed for CRY by David Lynch, an assistant producer at the global creative agency BBH London. The campaign was funded by a grant awarded to David through BBH’s internal charitable grant scheme and the film was directed by AG Rojas at Park Pictures, for no fee. The new campaign sets out to emphasise the importance of cardiac screening for young people and the need for unexplained symptoms such as fainting, blackouts and palpitations to be explored and not dismissed. Sport itself does not cause young sudden cardiac death but intensive physical activity – particularly endurance sports such as rowing, rugby, football and long distance running – can exacerbate an underlying condition. David Lynch, who wrote and produced the new film, said: “This has been a particularly emotive and rewarding campaign to

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Issue 65 | September to December 2014


Extra CRY News

work on. We are all delighted with the results and are confident that the ad will make an immediate impact on young people, their parents and sports coaches. We were inspired to make this film and to work with CRY due to my knowing someone who was helped by the charity. Once we began production, it became clear that so many of the people who helped us had also been affected – or knew someone who had been affected – in some way. We know the ad is very highimpact but the experts at CRY have gone to great lengths to ensure that their bereaved families have been forewarned about the content. We felt we had a responsibility to make this as realistic as possible

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to ensure CRY’s messages were delivered powerfully and effectively.” New CRY Patron Lee Mears, a former rugby international, added: “It might be difficult to watch but we can’t shy away from the message – screening saves lives and young people should have greater access to this service if they want to test

their hearts, even if just for their peace of mind.” The CRY film was the subject of articles in the Daily Mail’s print and online publications upon its launch, and subsequently an article appeared on the Sunday Times website. The film was then screened in a donated advertisement space on Sky Sports half an hour before kick-off of a highly-anticipated England vs Australia rugby international at Twickenham on November 29th. By February 2015, the film had been viewed nearly 300,000 times on YouTube and Facebook. To view the short film, visit www.cr-y.org.uk/launch-crys-new-shortfilm-young-sudden-cardiac-death

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Extra CRY News CRY infographic launched

On 14th September 2014 CRY launched a new infographic, raising awareness of the frequency of young sudden cardiac death via “Thunderclap” – a social media message amplification platform. The Thunderclap was sent out by 364 people, with a social reach of 1,428,976. There were 11,000 views on Facebook with most people watching at least 75% of the video. Our YouTube advert was viewed by 10,000 people. We are very pleased with this; it is a powerful animation and we have had a lot of positive feedback. This video can be played by supporters at events and during presentations, in the same way that the Ian Botham video and 12 A Week animation video can be used. This video can be found at www.cr-y.org.uk/cardiac-risk-younginfographic-raise-awareness-youngsudden-cardiac-death

CRY Christmas cards 2014 2014 has been the most successful year to date for CRY Christmas cards, raising over £20,000 for

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CRY’s core funding initiatives. We would like to say a huge thank you to Katy Turberville and Rosemary Attridge, our volunteers on the Christmas card committee. It was with great sadness that we learnt that Rosemary had died just before Christmas. Rosemary was a CRY County Representative and worked tirelessly on behalf of CRY at every opportunity she was given following the death of her son Stuart in 2006.

everyone who purchased the cards, helping to make this such a successful year. New designs for 2015 will be available to purchase in September.

easyfundraising and easysearch Katy Turberville and Rosemary Attridge

Each year the Christmas card committee carefully selects the new Christmas card designs. In 2014 we had a wide range of designs, offering specially commissioned cards from Impress Publishing, along with several winter scenes painted by CRY supporter John Bennett in memory of his daughter, Laura. We would like to say thank you to our supporters who helped sell CRY Christmas cards in shops: Carol Finch; Rosemary Attridge; Carl Johnson, Eunice Johnson and Janette Pollard at Cards for Good Causes shops; Kitty Hartnell at Ealing Charity Christmas Card Shop; and Anna Aristodemou at A Cut Above salon. We would also like to thank all those who sold CRY Christmas cards on our behalf this year. We really appreciate the time you have spent selling these amongst your friends and relatives and at various fundraising events. Last but not least, thank you to

During 2014 CRY supporters raised £139.75 by shopping and searching online with easyfundraising and easysearch. You can raise money for CRY while shopping online through the easyfundraising link easyfundraising.org.uk/causes/cry

By using easysearch every time you search the web, CRY receives 50% of the fees paid by advertising sponsors. You can use the link cry.easysearch.org.uk whenever you search the web to help raise money for CRY.

eBay for Charity Over the course of 2014 our supporters raised a fantastic £8,530.38 through eBay for Charity. If you would like to raise funds for CRY through eBay then please visit pages.ebay.co.uk/ebayforcharity/ index.html

Issue 65 | September to December 2014


Newsletter from the Deputy Chief Executive A response to the latest evidence summary produced by the National Screening Committee In the summer of 2014, the UK National Screening Committee (NSC) published a report of their review into the existing evidence concerning screening to reduce sudden cardiac death Dr Steve Cox (SCD) in young CRY Deputy Chief Executive people. More specifically, the report ostensibly examined the evidence concerning cardiac screening for young people using an ECG and medical questionnaire, a method which was chosen “because that is the predominant model run within UK charitable and sporting organisations” – partly a reference to CRY’s well-established and expanding national screening programme in the UK. CRY doctors Professor Sanjay Sharma and Dr Michael Papadakis found the NSC report extremely disappointing, as did I. We had attended consultations with the NSC during the review process and hoped that our experience in successfully operating a national ECG screening programme would help inform the document. Instead, key messages of the NSC report included the following: • “SCD is an important health problem. However there is little peer reviewed evidence to enable an accurate assessment of the number of people suffering from SCD.” • “There is no assessment of the test accuracy (sensitivity or specificity) in the literature so it is not possible to recommend its use in a national programme.” • “The conditions that lead to sudden cardiac

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death are poorly understood and there is no evidence to guide clinicians regarding treatment or lifestyle advice when such a problem is found in a family member or when detected at a screening examination.” Once we were notified of the report’s publication we drafted a response, which is too long to publish in its entirety here. We found it particularly incredible that a wealth of modern research in this field had been disregarded, and significant flaws in the report’s research-base and its subsequent assessments were apparent. The availability of peer reviewed data assessing the scope of SCD in young people was challenged by the NSC report. In response, we stated: “There are numerous studies in multiple countries in the literature that report on the incidence of SCD in the young, many quoted by the authors of the NSC review.” Furthermore, “The section relating to the incidence of SCD in the UK is unfortunately inaccurate and incomplete.” We were forced to point out the limitations of the research into incidence rates that the NSC did mention, which remarkably included a “simulation” of Italian data in a UK population (a report commissioned by the NSC itself). We also had to explain that the terms SCD (sudden cardiac death) and SADS (sudden adult/arrhythmic death syndrome, where the post-mortem fails to identify a structural cause of sudden death) are not interchangeable, with SADS “accounting only for 57 of the 419 (13.6%) SCDs annually” according to our research. Perhaps the most important failure of this section of the NSC report was its omission of “The magnitude of sudden cardiac death in the young: a death certificatebased review in England and Wales” (Papadakis et al., Europace, 2009) – which was the direct product of CRY’s internationally respected research programme and the first comprehensive assessment of the incidence of SCD in young people in England and Wales of its kind. We provided a table of other peer reviewed European and American research on SCD incidence rates which the NSC might also like to investigate. The NSC’s continued insistence that there is no data available of sufficient quality regarding the sensitivity and specificity of ECG screening programmes is also

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Newsletter from the Deputy Chief Executive deeply troubling. This is currently a catch-22, as while the NSC is free to hold evidence for the accuracy of cardiac screening up to the preferable scientific standard – “There should be evidence from high quality randomised controlled trials that the screening programme is effective in reducing mortality or morbidity” – we continue to argue that randomised trials in a population of participants with conditions that can cause sudden death would be “technically and ethically challenging”. In fact, it is our position that such trials would be technically and ethically impossible. The third NSC key message I mentioned concerns the conditions which cause SCD themselves, arguing that they are “poorly understood” and “there is no evidence to guide clinicians regarding treatment or lifestyle advice when such a problem is found”. Our response is that “for most conditions there is reasonable

evidence in the literature.” There is no question that the conditions causing SCD are numerous, or that the continued development of related medical guidance is necessary. However, 10 years ago a new chapter of the National Service Framework was commissioned following the debate over the proposed Cardiac Risk in the Young (Screening) Bill. CRY successfully convinced the government to legislate for the protection of families of victims of SCD from inherited heart conditions. The evidence available at the time was sufficient to view the identification and management of these conditions as a necessity. We continue to argue that this is the case. Best wishes,

CRY Screening Report Between September and December 2014 CRY screened over 5,000 people, mostly through family memorial screenings. At our regular CRY clinics 1,271 young people were screened. Clinics were held at the University of Ulster, Coleraine and Jordanstown campuses; Foyle College, Derry (funded by the Northern Ireland Fund); Noble’s Hospital, Isle of Man (funded by Craig’s Heartstrong Foundation); and the CRY Centre for Inherited Cardiovascular Conditions and Sports Cardiology at St George’s Hospital, London.

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Sports screenings included: Leicester Tigers RFC, Warwickshire CCC, Team SKY Cycling, England Rugby Sevens (Women), Lilleshall EIS, Loughborough EIS, Lawn Tennis Association and the National Cycling Centre. A total of 193 athletes were screened.

Moss (Stoke-on-Trent), Lydia Bird (Cardiff), Ben Birch (Berkshire), Matthew Dewhirst (Nantwich), Tom Clabburn (Ealing), Christian Thunhurst (Guildford), Dale Tennent-Butler (Hertfordshire), Harry Faulkner (Hertfordshire) and Oliver Thompson (Margate).

At 22 family memorial screenings 3,163 people were screened. These were held in memory of Michael Land (North Yorkshire), Andrew Murch (Aberfeldy), Jonathan Morgan (Stocktonon-Tees), Alex Reid (Sheffield), Lewis Marsh (Sandhurst), Adam Donnelly (Eltham), Daniel Young (Manchester), Jonathan Leigh (West Yorkshire), Claire Reed (Eastleigh), Ben Daniels (Kent), Adam Rowbottom (Oxfordshire), Jack Maddams (Rochester), Julian Wort (Somerset), David

A total of 467 young people were screened at four school screenings, which were held at Bedford Modern School, Bedford; St Edmund’s College, Hertfordshire; Prince Henry’s High School, Worcestershire (funded by The Mary Jane Foundation) and University of Surrey, Guildford.

Issue 65 | September to December 2014


CRY Screening Report

“I am delighted to confirm that we screened over 17,500 young people in 2014, a big increase of more than 3,500 from the previous year. This was made possible by the donation of our first dedicated mobile screening van, courtesy of Beefy’s Charity Foundation; cardiac machinery donated in memory of Gary Pope, David Staff and Neil Wickers and by Four Pillars Hotels; the expansion of the CRY Research Fellowship Programme, facilitating a growing and committed group of screening doctors; the hard work of our screening staff both at the office and at events across the country; and most importantly, the incredible dedication of the CRY families, fundraisers and volunteers who give their support to our national programme.” Dr Steve Cox, Deputy CEO and Director of Screening and Research.

CRY Screening Event in Frome from October 28– 29th, funded by the Julian Wort Memorial Fund

We also had a visit from David Rendel, the prospective parliamentary candidate for Somerton and Frome, who was very interested in the screening programme.”

Shirley Wort, Julian’s mum, reported: “We held our first ever screening event on October 28–29th at the Frome Rugby Club; 193 young people were screened over the two days. It was very emotional but also exciting to see so many people turn up and for so many families to say it had given them peace of mind. Our youngest visitor who came with his mum and dad (obviously not to be screened) was just three days old! The screening team were so professional and friendly.

From left to right: David Rendel, Shirley Wort, Debbie Farley and CRY Family Screening Manager Gareth Jones

What happens at a screening? The basic test is an electrocardiogram (ECG) which is a simple non-invasive and painless test that examines the electrical activity within your heart. The ECG involves lying down quietly and only takes 5 to 10 minutes. Small stickers are placed at strategic points on the chest, arms and legs. Flexible leads (called electrodes) that extend from the ECG machine are then attached to these stickers. The electrical rhythm of the heart is recorded and printed out. This part of the process only takes 2 to 3 minutes to perform. The ECG printout is then reviewed by a doctor in conjunction with a personal and family history questionnaire. If a more detailed image is needed (about 5% to 10% of individuals), an echocardiogram (ECHO) can be taken – this is similar to the ultrasound scan that is used on a pregnant woman to check the health of her baby. Soundwaves echo against various parts of the heart and they are recorded on a screen. This provides a detailed picture of the heart’s structure and how well it is functioning. This takes about 30 minutes to perform. The screening programme is under the aegis of Professor Sanjay Sharma.

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News Miccoli Hit the Malls Tour British band Miccoli – comprising siblings Alessandro, Adriano and Francesca – played 12 gigs over 12 weeks from London to Leeds to Nottingham as they performed weekend, all-day sessions to shopping centre crowds to spread the word about young sudden cardiac death. The band has a very personal association with the charity, following the diagnosis of Alessandro with cardiac conditions Wolff-ParkinsonWhite (WPW) and atrial fibrillation. Twin brother Adriano was then also diagnosed. Alessandro has been a member of the myheart Network since 2013 and attended the CRY Parliamentary Reception in November that year for the launch of the myheart booklet, of which he is one of the authors. Alessandro became aware of his condition when he collapsed backstage after a gig in Birmingham in 2009. As he describes for CRY’s myheart booklet: “I collapsed as soon as I walked off stage and emergency services took half an hour to get to

me (even though the closest hospital was only five minutes down the road). Their response for the delay was, ‘A young 25-year-old with chest pains, how bad could it be?’!” Speaking ahead of the 2014 CRY tour, Alessandro explained: “This experience [of diagnosis and treatment] has taught me not to take anything for granted and to really appreciate family and friends. For me it all boiled down to two simple choices; cry or laugh. I chose the latter, accepting my condition and carrying on with my life – and not

letting this potentially depressing and life-threatening condition dominate my life. This tour is all about educating and informing people that there are ways to stay ahead of these conditions and take steps to find out if you might be at risk. If you are, then don’t panic, you can be successfully treated and go on to lead a normal life. I just don’t want any young person out there, with their life ahead of them, to leave it until they collapse as I did and have to undergo emergency treatment – or even worse.”

Miccoli Hit the Malls:

Queensmere Observatory, Slough – October 2014

Whiteley Shopping Centre, Hampshire – August 2014

The Mall, Camberley – October 2014

Kingfisher Shopping Centre, Redditch – September 2014

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intu Broadmarsh, Nottingham – November 2014

The Lights, Leeds – September 2014

intu Chapelfield, Norwich – November 2014

The Grafton, Cambridge – September 2014

intu Bromley, London – November 2014

The Brunel, Swindon – September 2014

intu Derby, Derbyshire – November 2014

Telford Shopping Centre, Shropshire – October 2014

The Howard Centre, Hertfordshire – February 2015

Issue 65 | September to December 2014


News The Brunel – September 27–28th The weekend in Swindon was a big success for Miccoli; on Friday 26th September they were interviewed for BBC Wiltshire and were also a hit with the shoppers in the Brunel shopping centre. On Friday 3rd October the band was also interviewed on BBC Radio Shropshire and they believe these are the first of many more radio spots to follow!

Telford Shopping Centre – October 4–5th The Miccolis’ weekend at Telford Shopping was a big success. Lots of people turned up who had heard about the tour from the Radio Shropshire show and also a group of Miccoli fans came along to support the band which was a great boost.

Queensmere Observatory – October 11–12th Miccoli’s weekend at Slough felt like their best weekend yet! Crowds formed to watch the band, lots of donations were collected (over £100!) and many young people took away leaflets and were keen to find out more about screening.

Miccoli at BBC Radio Surrey on Friday 17th October, before their weekend gig at The Mall, Camberley

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intu Broadmarsh – November 1–2nd During Miccoli’s appearance in Nottingham they were approached by several bereaved families who shared their stories with the band and also commented on the good work that the Bereavement Supporters do for CRY.

intu Derby – November 22–23rd Miccoli’s 12th and final weekend of their tour in 2014 took them to Derby. There was a great response to their performance and the band attracted a lot of attention. Alessandro said: “Derby was a perfect place to end this year’s Miccoli CRY awareness tour, the response was overwhelming. There were lots of enquiries made about CRY and the work they do with young people, especially the screening service they provide. It really has been a pleasure over the past three/four months for my siblings and I to spread the word about CRY and tell people first hand how the charity has helped me and so many other young individuals and their families through difficult times; making families aware that help is available, that you no longer have to persist, fight or convince your GP to get screened – if you have a concern, instead simply contact CRY.

I have to admit, it hasn’t all been plain sailing on this tour – from bedbug infested hotel rooms; to camping in Hampshire and nearly getting burgled in a tent! (which is definitely a first for us); to cutting my finger on a camping knife (normally that wouldn’t warrant a mention, but when you need your fingers to play guitar and piano all weekend long, it’s a big deal/nightmare for musicians); to getting lost more times than we can remember; to the nauseating and arduous journey to Cambridge – which normally is a casual two hour drive from Birmingham, but ended up being an EPIC seven hour car journey; to noisy hotel generators; to locking ourselves out of our hotel room (yes, all three of us forgot our hotel cards); and finally changing my first ever flat tyre (well, helping out) on a very cold, very early October Sunday morning. But we would do it all again, we have met so many nice people along the way, shared stories, laughed and cried with them. The tour took us to 12 shopping centres across the UK in 2014, playing throughout the weekend, placing two CRY donation buckets beside us as we played. It may not seem a lot but the total from those two red buckets came to £1,311.56 exactly! We’d like to thank all the shopping malls and all the helpful staff for having us and letting us spread the message and raise awareness for CRY – and all those who came along to support the cause.” Miccoli were due to play another gig in February 2015 and looked forward to continuing their efforts after the Christmas break. On September 15th Miccoli released their new video for the single “Addiction” – to listen please visit www.miccoli.co.uk

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Report from the CRY Centre for Cardiac Pathology (CRY CCP) Professor Mary Sheppard, Consultant Cardiac Pathologist

We had 206 cases in total from January to December 2014. We were able to make a diagnosis of the cardiac cause of death in all cases. There was a dramatic improvement in turnaround time – from around 20 days in January to 5 days in December – due to the fact our staff are now fully trained and operational. Establishing a fully working laboratory with rapid turnaround has been achieved in a relatively short time given the complexity and the bureaucracy of the Human Tissue Act, coroner rules and finding appropriate equipment and staff. Visitors • Dr Nurulhusna Ahmad, a forensic pathologist from Malaysia, joined the team from September to January 2015 as an attachment from Queen Mary’s University. • Dr Tracy Sorkin, from the Cellular Pathology Department of St George’s Hospital, trained for four weeks in November. Teaching Professor Sheppard was appointed National Cardiac Pathology Trainer for the Royal College of Pathologists.

Nina Kaur-Gupta, PA to Professor Mary Sheppard Struan Bourke, Senior Laboratory Technician Fiona Maleady Crowe, Laboratory Technician Zoha Hamza, Database Manager

Lectures and Meetings

Inquests

• Guest speaker on aortic disease at the European Congress of Pathology (ECP), London. September 1st.

Professor Sheppard attended 14 inquests throughout the UK in 2014, speaking to relatives and helping families through their bereavement, which is a vital part of her work with CRY.

• Guest speaker on endomyocardial biopsy for the Russian Society of Cardiology Meeting, St Petersburg, Russia. September 10th. • Gave keynote lecture on sudden cardiac death in children at Heart Rhythm Congress, Birmingham. October 6th. • Speaker on sudden cardiac death for the Association for European Cardiovascular Pathology (AECVP) Meeting, Paris, France. October 10th. • Gave Philip Poole-Wilson memorial lecture at the Anglo Israel Cardiovascular Symposium, London. October 21st. • Speaker on the pathology of sudden death at the Cardiovascular Sciences Research Centre of St George’s Medical School, London. November 28th.

Publications Abstracts: • Yancheva S, Ángeles MonteroFernández M, Sheppard MN. “Sudden cardiac death in cardiac transplant patients – morphological findings in the heart.” Poster at ECP, London. September 2014. • Krexi L, Georgiou R, Sheppard MN. “Sudden cardiac death with emotional stress in young population: the importance of specialist cardiac pathological examination.” Poster at AECVP, Paris, France. October 2014. • Robertus JL, Burrell A, Sheppard MN. “The pathological disease spectrum of arrhythmogenic right ventricular cardiomyopathy (ARVC) in sudden cardiac death emphasising biventricular involvement and challenges in diagnosis.” Poster at AECVP, Paris, France. October 2014. • Robertus JL, Sheppard MN. “The CRY UK sudden cardiac death database.” Oral presentation at AECVP, Paris, France. October 2014. Papers: • Fryer E, Roberts IS, Sheppard MN, Verrill C. “Post mortem examination in the morbidly obese.” Histopathology. September 2014.

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Issue 65 | September to December 2014


Research News CRY International Medical Conference 2014 On 10th October 2014 the ninth CRY Conference took place in London, and 160 medical professionals including cardiologists, physiologists and GPs booked their attendance for 15 cardiology presentations by leading experts from six countries. There was also an audience-led panel discussion on screening programmes, the presentation of the annual Pete Hinchliffe Award and case studies presented by four new CRY Research Fellows. The first session consisted of four presentations on distinguishing between exercise related cardiac changes and dangerous heart conditions. This is a crucial field of study for the general population as well as athletes; “athlete’s heart” often closely resembles dangerous cardiac conditions, and establishing the indicators of disease in difficult populations helps inform guidelines for the screening of all young people. French expert Professor François Carré opened with a presentation on criteria for long and short QT syndromes. He was followed by three current and former CRY Fellows; Dr Abbas Zaidi, Dr Greg Mellor and Dr Ahmed Merghani, who respectively presented their sports cardiology research on right ventricular enlargement, early repolarisation changes and cardiac changes in older athletes. The longest session, “Preventing sudden cardiac death in the young”, examined the development of screening programmes, athletic and otherwise, within various countries and organisations. Professor Domenico Corrado gave an update on the athletic screening programme in Italy, where pre-participation ECG screening for organised sport is mandatory and has reduced sudden cardiac death in athletes by around 90%. He emphasised that the former athletes disqualified are not only protected from aggravating

Professor Sanjay Sharma, CRY Consultant Cardiologist, with medical students from Liverpool John Moores University at the CRY Conference

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Professor Domenico Corrado

their condition through sport but, importantly, are then receiving appropriate treatment to live a normal lifespan: “This large amount of life-years saved favourably influences the cost-effectiveness of screening.” Professor Christine Lawless followed with a breakdown of the US approach to athletic cardiac screening, explaining that the extent and methods vary greatly between youth, college and professional levels of sport. Furthermore, she described how basic screening with the American pre-participation physical evaluation (PPE) guidelines, recommending family and personal history and a physical exam but no ECG, was often left to primary care physicians and team doctors who were unsure of the PPE’s application or even its existence. However, Professor Lawless stated that publication of the Italian data in 2006 had galvanised the debate for ECG screening within the American cardiology community. Dr Andrew Cox reported the trial implementation of a new ECG screening programme for recruits to the British Army, “very similar” to the CRY programme. It has proved both more effective and less expensive than the previous version, which was modelled on American Heart Association guidelines and required referral for an ECG. Other screening programmes examined included those of the Football Association and Cardiac Risk in the Young itself, by CRY Fellows Dr Aneil Malhotra and Dr Rajay Narain respectively. Dr Narain presented statistics from CRY’s screening of 12,000 people aged between 14 and 35 in 2012, of which 9.4% required an echocardiogram on the day but only 3.4% then required further investigation at hospital, progressing the case for affordable NHS cardiac screening for all young people. Furthermore, a survey of those found to have a condition showed that 60% had their conditions identified on the day of their CRY screening, proving the cost-cutting accuracy and efficiency of the screening programme.

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Research News

Dr Sabiha Gati, winner of the Pete Hinchliffe Award 2013

At noon, a panel discussion was chaired by Belgian Professor Hein Heidbüchel, Professor Corrado, Professor Lawless, Dr Malhotra, Dr Narain and Dr Steve Cox – CRY’s Deputy CEO and Director of Research and Screening. Questions raised by the audience regarded the best way to direct patients to specialists if symptoms present; the consequences of misdiagnosis; and improving the education of frontline health professionals, including the potential for additional guidelines and certification for screening personnel. Professor Heidbüchel went on to raise the controversial subject of how elite athletes with an implantable cardioverter-defibrillator (ICD) to manage a potentially dangerous condition might continue their career, including issues regarding the extent a condition could worsen during and after professional sport and how the increased likelihood of shocks from an ICD could negatively affect athletes physically or psychologically. Professor Sanjay Sharma, CRY Consultant Cardiologist, closed the session with a presentation on treating sudden cardiac arrest in the field. He described a harrowing personal experience as Medical Director for the London Marathon – where a young woman suffered a fatal cardiac arrest in 2012 – and stressed that a reason athletic cardiac deaths are so emotional is that the majority could have been prevented. The afternoon opened with three presentations, from Professor Mats Borjesson of Sweden and former CRY Fellows Dr Michael Papadakis and Dr Nabeel Sheikh, regarding diagnostic recommendations and treatment of ischemic heart disease and inherited heart disorders such as hypertrophic cardiomyopathy (HCM) in young athletes. Professor Sharma then introduced Dr Sabiha Gati as winner of the Pete Hinchliffe Award for her work as a CRY Research Fellow in 2013: she gave a presentation explaining her novel research on ventricular noncompaction, which is characterised by a spongy mesh of muscle bands lining the ventricle walls.

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Dr Michael Papadakis, myheart Network Cardiologist

In the final session, case studies were presented by new CRY Research Fellows, raising difficult questions and prompting fierce debate amongst the audience and chairpersons; Professor Sharma, Professor Lawless and Dr Steve Cox. For some of the speakers it was their first chance to present CRY research and demonstrate growing expertise in the face of clinical dilemmas. • Dr Lynne Millar presented the case of a 6’7” 42-yearold Tour de France cyclist with left ventricular dilation, and recounted her investigation into whether the extreme size and athleticism of the patient meant only moderate indicators of pathology were a result of cardiac adaption or disease. • Dr Keerthi Prakash introduced the case of a teenage Afro-Caribbean footballer diagnosed with HCM. In response, Dr Tessa Homfray, a colleague of Professor Sharma at St George’s Hospital, raised the paradox that black athletes appear to undergo more healthy physiological changes in response to exercise than white athletes, but also statistically appear to be at a higher risk of sudden cardiac death. Professor Lawless agreed this does require further research; and suggested that one reason is socio-economic differences, certainly in the US, can expose young white athletes to screening earlier, whereas black athletes are frequently not screened until later in their career, putting them at risk for longer. • Dr Vincent Gabus presented the case of another black footballer; the 22-year-old was diagnosed with a coronary artery anomaly (CAA) following a sudden collapse. It was briefly discussed that CAAs are notoriously difficult to detect without thorough screening, but Dr Gabus’s focus was on the advisable treatment. Professor Sharma questioned whether formidable surgery which can result in complications should be recommended or whether, considering the infrequency of deaths due to CAAs

Issue 65 | September to December 2014


Research News in patients over 35, the condition could be managed into later life.

cardiologists such as Professors Sharma and Lawless spent a lot of time giving their recommendations.

• Dr Harshil Dhutia discussed whether a 15-year-old swimmer should be restricted from competitive sport due to a low probability of long QT syndrome. The young athlete suffered occasional dizziness on exertion, but other indicators of cardiac disease disappeared as he matured and he was keen to continue. The question of when and how to advise against competitive sport stimulated a big response from the audience and the more experienced

Every presentation at the 2014 conference received “very good” averaged feedback from the attendees, and limiting the event to one pressurised day seemed to squeeze the best from the many speakers and stimulate debate. Footage from the conference will soon be available on the CRY website. For more about the CRY Conference visit www.c-r-y.org. uk/cry-international-conference

Presentations: Cardiovascular adaption to exercise “QT-interval in young athletic individuals; The long and short of it” Professor François Carré “Right ventricular enlargement in athletes; Physiology vs pathology” Dr Abbas Zaidi

“The registry on ICD in athletes; Same dataset but different perspectives” Professor Hein Heidbüchel “Treating cardiac arrest in the athletic field; The moment everyone dreads” Professor Sanjay Sharma

Athletes with cardiovascular disease

“Early repolarisation; Training related or marker of heart disease?” Dr Greg Mellor

“Update of exercise recommendations for athletes with IHD” Professor Mats Borjesson

“The veteran athlete’s heart; Unravelling the mystery of chronic intense exercise” Dr Ahmed Merghani

“The role of exercise testing in the assessment of athletes; Beyond IHD” Dr Michael Papadakis

Preventing sudden cardiac death in the young

“Athletes with HCM; Black and white, or fifty shades of grey” Dr Nabeel Sheikh

“Update of pre-participation screening in athletes; ten years onwards” Professor Domenico Corrado “Current state of pre-participation screening in the USA; Facts and fallacy” Professor Christine Lawless “Screening of military recruits; The British Army experience” Dr Andrew Cox “Screening elite football players; The FA experience” Dr Aneil Malhotra

The Pete Hinchliffe Travel Award for Medics “Paradigms of hypertrabeculation of the LV myocardium; Novel cardiomyopathy or physiological response to increased cardiac load?” Dr Sabiha Gati

Case Studies Dr Lynne Millar Dr Keerthi Prakash Dr Vincent Gabus Dr Harshil Dhutia

“The CRY experience; A pragmatic approach to screening” Dr Rajay Narain

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Bupa Great North Run 2014

Congratulations and a huge thank you to the 51 runners who took part in the Bupa Great North Run for CRY on Sunday 7th September 2014.

2014’s race was a very historic year for the event, seeing its one millionth finisher! The atmosphere was incredible and the sun was shining on the day. CRY Patron Matt Wells, who finished 258th of over 56,000 runners, said of the event: “It was a great day, and no rowing! I finished in 1:23:48.6. I was very pleased as I have never run a half marathon before.” A special thank you to the runners from Effective Energy and Unum, who very kindly chose CRY as their charity of the year, and to Alison Edwards, Joanna Joyce and Gary Thompson who all ran in CRY heart costumes – despite the high temperatures on the day. It was great to spot Gary in the CRY heart costume as he approached the finishing line on the BBC coverage of the event! CRY’s stand in the Bronze Marquee acted as a meeting point post-race and around 30 of the CRY runners came back to the marquee to be welcomed by our volunteers Jane, Ed, Les, Iris, Jordan and Dylan – who continue to do a wonderful job of representing CRY at the Great North Run. It was a challenging day and especially difficult for those who were running in memory of a partner, family member or friend. Everyone should be extremely proud of a wonderful achievement and we look forward to seeing some of you again in 2015. Thank you again to every CRY runner for their huge efforts in fundraising and running the half marathon.

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Issue 65 | September to December 2014


Bupa Great North Run 2014

CRY runners were: Paul Simon Abrahams

(in memory of Josh Fell)

Laura Adams

(in memory of Stephen Adams)

Trevor and Rachel Atkinson

(in memory of David Mark Chance)

Bethany Bradbury (in memory of Amy Evans)

Alison Bramley

(in memory of Garreth Scott)

Karen Bunning

(in memory of Ellen Davies and Richard Poulter)

Robert Carr

(in memory of Lee Turner)

Peter Chamley

(in memory of Alex Reid)

Nicole Collingwood (in memory of Neil Darby)

Alistair Fimister

Dave Macleod

Karen Flintoft

Melanie May

(in memory of Alex Reid) (in memory of Lewis James Barry)

Kelly Jane Gleadow (in memory of Graeme Bell)

Katherine Sophie Godwin

(in memory of Sophia Forrester)

Anthony and Nicola Harsley

Louise Moorhouse

(in memory of Ella Rose Keeler)

Aran Morland

(in memory of Arabella Campbell and her father, Mike)

Peter Teale

(in memory of Zoe Teale)

Gary Thompson

(in memory of David James Ward)

(in memory of Levon Morland)

Julie Thompson

Caitlin and Kevin Nicholas

Isabel Turner

(in memory of Josh Fell) (in memory of Tom Clabburn)

Wendy Noble

Matt Wells

Lynne Rathbone

Clare Westlake

(in memory of Mike Rathbone)

(in memory of Richard Poulter)

Simon Heseltine

Chris Reilly

Tony Alan Wheatman

(in memory of Levon Morland)

(in memory of Kasia Ber)

Barry Holcombe

Adam Robson

Sarah Williams

(in memory of Leon Ashley Manners)

Janice Heggie

(in memory of Andrew Holcombe)

David Jackson

(in memory of Louise Bignall)

Mike Jarrett

Alison Edwards

Joanna Claire Joyce

(in memory of Andrew Murch)

(in memory of Alex Reid)

Penny Spiller

(in memory of James Nicholas)

Maisie Eakin

(in memory of Chloe Waddell)

(in memory of Luke Macleod)

(in memory of Zoe Teale)

Marie-Clare Scott

(in memory of Sara Pilkington)

(in memory of Craig Wilson)

(in memory of Jason Williams) From Effective Energy:

David and Nicola Slater

Richard John Cox Carl Fisher Graham Roddan

Katharine Ann Smith

Lynsay Perides

(in memory of David Elliot)

From Unum:

(in memory of Nathan Perides)

(in memory of Patrick Swinson)

The Morrisons Great North Run will take place on Sunday 13th September 2015. Please contact events@c-r-y.org.uk for further information.

www.c-r-y.org.uk

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CRY Durham Riverside Walk 2014 Thank you to the 286 supporters who took part in the fifth CRY Durham Riverside Walk on Saturday 4th October 2014. Since 2010, the Durham Walk has flourished with a record number taking part last year. Our thanks to everyone who could attend and make the day so special. It was a greatly affecting sight to see families and friends coming together to walk in memory of a young person, and learn that many of the walkers were able to meet up again with friends as well as CRY staff and volunteers. The day started off very wet but the wild weather had improved by the time the majority of walkers arrived. Thanks to the diligence of our supporters the event enjoyed a great deal of local press coverage before and after the event, including articles in the Durham Times, Northern Echo and Teeside Evening Gazette. Rebecca Zouvani, CRY Fundraising Manager, made a short introductory speech to thank everyone for coming and introduced Steve Percival, who spoke about the walk and the importance of CRY’s aims. He then introduced fitness instructor Carl Higgins, who led a very entertaining and fun group warm-up. Jeff Morland once again officially started the walk as one of its principal instigators. The walkers (with wheelchairs, buggies, toddlers and dogs in tow) set off on the walk, picking up bottles of donated Lucozade Sport, water and cartons of orange juice on the way. Following the beautiful River Wear, walkers took in the magnificent view of Durham Cathedral which provides a stunning backdrop. Luckily, the weather had improved enough for the walkers to take advantage of the impressive views on the route. Following the extensive landslide in 2013, the route had been reduced to just over 5K in distance, but many of our supporters felt this was challenging enough! We would love to see everyone again in 2015, CRY’s 20th anniversary year, and we also hope to see more new faces. We are planning to hold the event on the 3rd or 4th of October, so please provisionally keep this weekend free if you are interested in attending. If you would like to know when a date has been confirmed please email events@c-r-y.org.uk.

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Issue 65 | September to December 2014


CRY Durham Riverside Walk 2014

We really couldn’t run an event like this, so far away from the CRY office, without the help of our dedicated volunteers: David (Joe) Crow, Linda and Geoff Goodwin, Carl Higgins, Jeff Morland, Wendy Moss, Steve Percival, Janette Pollard, Julie Slater and Jen Stravghan. A big thank you to staff at Unum’s Bristol office for printing and assembling the packs. The CRY screening van donated by Patron Sir Ian Botham OBE’s Beefy Foundation was used at the event, and Sir Ian contacted local media to promote the walk. Thank you to all the supporters who did the same and ensured that the event was so well publicised.

www.c-r-y.org.uk

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Sure Run to the Beat 10K Thank you and congratulations to the 20 CRY runners who took part in the first ever Sure Run to the Beat 10K on Sunday 14th September 2014. The Sure Run to the Beat 10K was a new event this year as Run to the Beat had previously been a half marathon. The location also changed to Wembley Park for the 2014 event. We were lucky with the weather as it stayed dry throughout the day, with sunny intervals and a cool breeze which all the runners appreciated. This was perfect weather for the spectators and cheerers as well. There were 13 music stations around the route which kept the runners motivated along the hilly 10K and a main stage was set up at the finish. The atmosphere was amazing with DJ sets from drum and bass duo Sigma, BBC Radio 1’s Nick Grimshaw and Tom Parker from The Wanted. As always, it was wonderful to meet our runners and to put names to faces. Everyone seemed to enjoy the day including runners’ family and friends who were there to support them. It was great to see them all. Thank you and well done to all of our participants. We are so grateful to everyone who chose to take part for CRY.

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Issue 65 | September to December 2014


Sure Run to the Beat 10K

CRY runners were: Jenny Boag

Eleanor Curtis

Matilda Henry

Anna Brinck-Johnsen

Aimee Derraven

Sonja Hodgson

(in memory of Barry Nivett)

(in memory of Max Curtis)

(in memory of Jack Sheriff)

(in memory of Alexander Brinck-Johnsen)

Simon Forrest

(in memory of Jenny Kerwood)

Angela and Gary Brocklesby

Wendy Harrington

(in memory of Jack Boulton)

(in memory of Max Curtis)

(in memory of Barry Nivett)

David Cram

Gemma Harte

(in memory of Max Curtis)

(in memory of Claire Dee Shapland)

(in memory of Max Curtis)

(in memory of Paris Holden)

Emma Jolliffe Tamara Klien

Atinuke Ogundere Jo Pitkin Faisal Rahmatallah (in memory of Max Curtis) From Unum:

Julie Murray James Williams

Amy North

(in memory of Jenny Kerwood)

The next Sure Run to the Beat 10K will take place on Sunday 13th September 2015. Please contact events@c-r-y.org.uk for further information.

www.c-r-y.org.uk

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CRY Great Cake Bake 2014 The third CRY Great Cake Bake took place on Friday 28th November 2014 as part of Raising Awareness Week. We would like to thank everybody who took part for their efforts – money is still coming in but we are delighted to say we have raised £20,149.77 so far! For the first time we held a competition in 2014 with two copies of top chef Ariana Bundy’s bestseller “Pomegranates and Roses” to be won. Our thanks to Ariana Bundy for donating the books and well done to the winners – we hope to see more competition in this year’s event! Top fundraiser This was a very close competition with several of our bakers raising over £1,000 – an incredible achievement. However, our overall winner was Hollie Button and her colleagues at Heathrow Airport who raised a wonderful £1,270 from their cake sale – which their employers are matching to make an amazing £2,540 in total! Best cake design It was a tough decision for the judges, with many hungry deliberations, but the winning cake was chosen from the sale held by June Thomas. We were particularly impressed with the ECG line that ran around the cake! • Anna Aristodemou raised £120.14 selling cakes to her customers at A Cut Above hair salon. • Julie Austin’s cake bake raised £67.67. • Kathryn Badon raised £800 in memory of her son Adrian:

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“I am pleased to say that with great support from colleagues and family we have raised £800 across three sites in the Department of Health in Leeds, London and Fleetwood. The figure includes the money from my 89-year-old mother who held a small cake bake at the local community coffee shop.” • Janet Batson raised £415 in memory of her son Mark. • Moira Boakes raised £300 in memory of her brother Simon: “It was a great morning and we held a raffle to boost profits with some fab prizes.” • Lisa Bramwell, Judy Broad and Beverley Glover raised £740 in memory of Dave Bramwell and Emma Broad: “We raised £740 and ate and sold lots of cake. The money

Issue 65 | September to December 2014


CRY Great Cake Bake 2014 has been donated through the Virgin Money Giving site to the Dave Bramwell Memorial Fund to help pay for a screening in June, though the money was raised in memory of both Dave and Emma Broad.” • Judy and Dennis Brookes raised £380 in memory of their son Greg: “As you can see we did a very successful Great Cake Bake this year in memory of our son Greg Brookes and raised £380. It was held at Ratby Sports Club and was well supported by friends and people in the village who saw our posters. We took a couple of photos before it started but the table was groaning with cakes once people arrived with their donations. We also held a raffle. Our grateful thanks to Steve at the club who suggested that we ‘went global’ and also helped us on the day.” • Hollie Button raised £2,540 (including matched funding) in memory of her brother Graham. • Elizabeth Callaghan’s cake bake raised £60. • Karen Campbell raised £372 in memory of her son James: “The staff at ASDA were extremely accommodating as it was a very busy day for them. The stall was manned by students from Macmillan Academy and some of James’s family. We all looked marvellous in our red sashes and with our

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trolley of merchandise. We had people coming into the store to deliver cakes for us to sell; it really was heart warming. Thank you to everyone that baked and bought, you are all extremely generous and amazing!” • Amanda Colligan’s cake bake raised £250.

• Sue Cooke raised £215 in memory of Adam Donnelly: “The event was well attended and tea and coffee was provided, enabling many people to socialize while enjoying some of the many home made cakes donated. I would like to thank everyone who supported the event. Thank you to the congregation of St Sadwrn for the use of the hall.” • Sinead Bode raised £163 at Essensuals Salon in memory of Adam Donnelly. • Daisy Cousins held a teddy bears’ picnic with the help of her grandma Jackie, and raised £30 in memory of Jackie’s son Bruce.

• The CRY office’s cake bake raised £100.41.

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CRY Great Cake Bake 2014 • Sue Fisher raised £110 in memory of her son Philip Standing. • Karen Gardner raised £358.53 in memory of her husband Stewart: “Colleagues and friends were so kind selling and baking. Hard work but a brilliant day. My other half Mark had a sale in his office and a friend of ours pushed it at his work too! I think we will be doing another next year! Everyone loves a cake!” • Lauren Gold raised £449.98 in memory of Daniel Newman. • Tom and Judy Green raised £1,127.30 in memory of their son Adam. • Chevaun Greenhill raised £115 in memory of her brother Lewis Barry. • Nelly Griffiths and friends Annie Bastian and Jasmine Rawlings raised £102.11 at North Wootton Community School. • Janet Hewett raised £106 in memory of her son Simon: “I had been busy baking for nearly two weeks (it was rather hectic as we’d only arrived in the area in early November and I had an unfamiliar oven and cake tins to cope with!). However, lots of tasty cakes and shortbread were somehow produced, and all were bought! We managed to give away lots of CRY leaflets and talked to people about the wonderful work CRY does.” • Graham and Anne Hunter raised £555 in memory of their daughter Claire Reed:

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“We had an amazing afternoon on Friday at our cake bake held in Botley Market Hall, raising £555, and almost selling out of cakes! The tombola went well too.” • Suzanne Hunter’s cake bake raised £200. • Koula Louki’s cake bake raised £1,040. • Christine Marshall raised £337 in memory of Shamil Hamid. • Barbara Meineck’s cake bake raised £162. • Carol and Tony Nicholls cake bake raised £71.60. • Clare Northcott and friends and family of her daughter, Arabella Campbell, raised £766; this was match funded by Basepoint Centres, Dartford, making a total raised of £1,532: “Former classmates of Arabella at Langley Park School for Girls and their families organised a cake bake as part of Cardiac Risk in the Young’s Awareness Week, making over 600 homemade cakes, sponges, cookies and gingerbread men. The cake sale was fantastic, we had over 45 bakers and 100 Krispy Kreme doughnuts. We actually sold to the staff on Wednesday of that week and to the students on the Friday.” • Hollie Page’s college cake bake raised £102.45. • Kay Rawlinson raised £330 in memory of her son Craig Rawlinson.

Issue 65 | September to December 2014


CRY Great Cake Bake 2014 • Sue Robinson’s cake bake raised £30. • Natalie Sharp and the X-ray department, Royal Sussex County Hospital, Brighton, raised £510.24 in memory of their colleague CherylChristopher Webber and her sister Trina Christopher.

Prizes for the raffle were kindly donated by local businesses and they raised £487. We are looking forward to participating again this year and raising funds for such a worthy cause.”

• Michaela Stratford raised £101.24 in memory of Richard Merriman. • June Thomas raised £1,211 in memory of her son Jack. • Morag Sheridan raised £157.03 in memory of her husband Paul.

• Sara Sheridan raised £57.50 in memory of her brother Paul. • Kate Fender raised £85.50 at the playgroup in memory of her brother Paul Sheridan. • Zoe Fitzsimmons raised £106.81 in memory of her brother-in-law Paul Sheridan.

• Lesley Thompson raised £36.64 in memory of Joseph Halliwell at a cake bake held in Bulgaria. • Luigi Vetere raised £278.35 in memory of his son Vincenzo: “Many hungry mouths were fed from delicious food brought in by many contributors. My co-organisers were Jo Weiner, Joycelyn Joseph and Shaista Razaq – many thanks for their tremendous efforts.” • Hilary Wagstaff raised £1,265 in memory of Ethan Jones.

• Christine Slater raised £236 in memory of her son Tim Jones. • Linda and Bryan Stiller and WKB Nissan, Waterlooville, raised a total of £838 in memory of Linda and Bryan’s son David: “We staged the event across a whole week of selling cakes with the aim of making money for the charity and increasing awareness of the valuable work you do. We raised a total amount of £351 which is an addition to WKB Nissan in Waterlooville, who assisted us setting up a stall in their showroom to sell cakes and raffle tickets.

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• Helen Walcott’s cake bake raised £211.

• Zoom Media’s office cake bake raised £196.

We are pleased to announce that the fourth CRY Great Cake Bake will be taking place on Friday 27th November 2015. For more information or to register for your information pack please email ben@c-r-y.org.uk.

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CRY Parliamentary Reception 2014

Speakers from left to right: CRY Patron Lee Mears, CRY Consultant Cardiologist Professor Sanjay Sharma, CRY Chairman Hugh Mulcahey, CRY APPG Chairman Kevan Jones MP, CRY Chief Executive Alison Cox MBE and BBH Assistant Producer David Lynch

The CRY Parliamentary Reception on Wednesday 26th November 2014 was a crowded event wellattended by CRY Representatives, supporters, bereaved families, myheart members, CRY doctors, Patrons and 21 MPs.

This year, and for the first time, we were very proud to be launching a cinematic, hard-hitting one minute film created specifically for fast, wide-ranging circulation. It was donated by multinational advertising agency Bartle, Bogle and Hegarty (BBH) and the brainchild of David Lynch, an assistant producer at the agency. The video ran on a screen with headphones during the evening to be easily accessible to all our guests.

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MC for the evening was CRY Chairman Hugh Mulcahey, who introduced Kevan Jones MP, founder member and Chair of the CRY All Party Parliamentary Group. Kevan reminded us that 2014 marked the 10th anniversary of the Cardiac Risk in the Young (Screening) private members’ bill that was so successfully supported by MPs and CRY families, resulting in a new chapter of the National Service Framework on arrhythmias and sudden cardiac death. CRY’s new Patron Lee Mears, who played hooker for Bath and England rugby teams, was recently diagnosed by CRY Consultant Cardiologist Professor Sanjay Sharma and although devastated to learn he must stop playing rugby he also recognised how lucky he had been to have his condition identified. He emphasised the importance of testing young people at the grassroots level in sport where many of the deaths occur. CRY Representative Sue Dewhirst spoke movingly about how the first time she saw the film she felt she was watching her Sue Dewhirst and husband Chris with CRY son Matthew Patron Lee Mears because of the number of his faints she had witnessed over the years during rugby games. Matthew died playing rugby

Issue 65 | September to December 2014


CRY Parliamentary Reception 2014 at 17 after repeatedly collapsing since he was 8, but his “faints” were consistently dismissed by doctors as dehydration or stress. Professor Sanjay Sharma declared that screening should be being used more proactively to safeguard the 80% of young people with a hidden heart condition who die without exhibiting any warning signs or symptoms. He said he was glad that so many schools had taken advantage of CRY’s screening programme over the year but wanted to see all schools in the UK get on board. CRY Patron Baroness Ilora Finlay, a prominent member of the House of Lords, eloquently highlighted that the full cost of a young life must be properly addressed. It was only when decision makers fully understood this cost did she think that the matter would be given the priority it deserves. As well as our Patron speakers Ilora and Lee, the event was also supported by CRY Patrons Jeremy Bates, Simon Halliday, Pat Jennings OBE KSG, Phil Packer MBE, Andy Scott and Alison Waters who we were delighted to welcome to the event and whose company was very much enjoyed by our many guests.

At our 2013 Parliamentary Reception Mike Gapes MP had reduced many guests to tears when he spoke of the personal impact of the death of his daughter Rebecca the previous year. Everyone who heard him will remember his courage in speaking and he was chosen to receive this year’s painting by CRY supporter John Bennett. John told us that he felt a particular affinity to Mike because he started painting to help him come to terms with the death of his own daughter, Laura. For more photos from the event, please visit www.c-r-y.org. uk/cry-parliamentary-reception-2014

From left to right: Phil Packer MBE, Andy Scott, Alison Waters, Pat Jennings OBE KSG, Alison Cox MBE, Simon Halliday and Lee Mears

A Partner’s Grief booklet authors with Patron Lee Mears

Bereavement Supporters

Current and former CRY Research Fellows with Professor Sanjay Sharma

myheart members

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Our Fundraisers Corrections and Apologies Apologies to the family and friends of Ellen Davis, as funds raised by Amanda Lysons in respect of the Virgin Money London Marathon 2014 were incorrectly stated to have amounted to £2,376.

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Apologies to the family and friends of Andrew Gard, as funds raised by Caroline and Peter Gard in respect page 57 of their 60th birthdays were incorrectly stated to have been donated by Caroline and Paul Gard.

In Memory of

Claire

Kevin Geary sent in a donation of £100.

In Memory of

The raffle was drawn on the night and some fantastic prizes were won including clothing from Helly Hanson, Gill and Slam and vouchers for luxury hotels and top restaurants. Further thanks goes to all the other companies who donated as well as Printing Crazy, The London Boat Show and 2ndHandDinghies.com for their continued support.”

Lucy

Debs Chalmers sent in a donation of £640.

In Memory of

Malcolm

Miriam Monteith, Marine Resources, sent in a donation of £302 raised through their boat show party: “The 2014 Marine Resources Boat Show Party took place Thursday 18th September 2014. This year was yet another success as exhibitors and industry professionals partied the night away, glow sticks in hand, at Popworld, Southampton. Party-goers had a chance to let off some steam on the dance floor after a busy few days at the PSP Southampton Boat Show 2014.

In Memory of

Tom

Andrew Curran took part in the ASICS Greater Manchester Marathon and raised £794.

In Memory of

Vikas Agni

• Matthew McNeeney raised £895 from taking part in the Richmond Half Marathon. • Karthik Darmasseelane sent in a donation of £101.

Marine Resources thanks everyone who attended and for helping to raise over £600 for the nominated charities; CRY and The Ellen MacArthur Cancer Trust.

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In Memory of

Jocelyn Ainsworth

Sebastian (Jocelyn’s brother) and pupils of Arzier Primary

Issue 65 | September to December 2014


Our Fundraisers School, Switzerland, raised £875 through taking part in the 20km de Lausanne. “We as a family would like to share our feelings of gratitude to all the children and adults who have contributed to the positive legacy of our beloved son Jocelyn, who died suddenly in May 2013 aged four and a half of an undiagnosed heart condition. His big brother Sebastian Ainsworth (age 10) and fellow pupils of the Arzier Primary School took part on Saturday 26th April 2014 in the 20km de Lausanne to raise funds for CRY. Pupils ranging in age from four to 10 years old trained through March and April with a group of volunteer coaches to run a 2K and a 4K race. We struggle to deal with it daily but the human spirit of kindness we have been shown has deeply touched us and continues to help us come to terms with our loss. Thank you all. Through the efforts of the children running and their generosity donating sponsorship money, we can make this generous contribution to a charity which has touched our hearts. The comfort of your kindness is a reinforcement in our belief that life can and will go on. Thank you, Arzier School. Thank you, CRY.” Family Ainsworth.

of which £250 was donated by Raygar Architectural & Engineering Supplies and £100 was raised through a 24hr poolathon.

In Memory of

Robert Andall

Daniel Sulkowski took part in the Three Peaks Challenge and raised £830.68.

In Memory of

Marcus Armstrong

• Tony Armstrong sent in a donation of £150 from GMA Warehousing & Transport. • Gavin Lewis raised £1,054 through taking part in the Prudential RideLondon-Surrey 100 2014.

In Memory of

Martyn Ashworth

Barclays Bank donated £2,000 raised through fundraising events during the year.

In Memory of In Memory of

Badir Al-Chalabi

Margy Al-Chalabi sent in a donation of £100 and forwarded £175 from Mr and Mrs Cockle and the Cheah family, making a total raised of £275.

In Memory of

Robert Allan

Charlotte Payne and Lisa and Rob Allan raised a total of £720 through running the Windsor Half Marathon 2014.

In Memory of

Steven Allseybrook

Sue Allseybrook sent in total donations of £1,239.82,

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Alan Bain

Kathleen and Norman Bain sent in a donation of £3,776.33 raised through the sale of items at the Blue Door charity shop.

In Memory of

Andrew Baker

• Steven Buczek sent in a donation of £565 raised at the Andrew Baker CRY golf day, which was attended by 65 golfers, friends, family and supporters. • CRY Representatives Jackie and Alan Cousins attended a musical evening in memory of Andrew Baker and sent in a donation of £500:

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Our Fundraisers “On 21st May 2014, Alan and I attended a musical evening presented at the Broom Methodist Church near Rotherham by local choir Double Octave and guests The Dronfield Bell Ringers. The music was very varied and we enjoyed it very much. The young man who was being remembered was Andrew Baker. In due course we received a cheque for forwarding to CRY of £500 and I believe other events organised by Andrew’s friends have produced further donations.”

In Memory of

Aston Banbury

James Banbury has donated £259 raised at a dinner and dance charity event.

In Memory of

Johny Barker

Stephen Barker sent in a donation of £843.

In Memory of

Liam Barnfield

Ryan Stephens took part in the Bupa Great South Run 2014 and raised £150. • Ed Northway sent in a donation of £1,754.99 in respect of the Yorkshire Warrior 2014 event.

In Memory of

Cecilia Barriga

• Tim Coleman sent in a donation of £583.70 on behalf of WM Morrison Supermarkets in Bradford from a charity quiz in memory of their colleague: “Friends of Andy Baker, who passed away suddenly in 2013, raised funds for CRY with a special quiz evening in his memory. The event, held at the Morrisons head office in Bradford where Andy worked, saw more than 200 staff battle it out to be crowned team quiz champs. Each round featured an ‘Andy question’, worth double points, based on his interests and hobbies, as well as a mystery round where all the answers contained either ‘Andy’ or ‘Baker’.”

• Mike Fleet sent in a donation of £150. • Emily Mould raised £170 from taking part in a Colour Run event.

In Memory of

Lewis James Barry

Karen Flintoft raised £516.76 through taking part in the Bupa Great North Run 2014.

In Memory of

Matthew Beadle

• Matt Pryor sent in a donation of £423 in respect of his cycling challenge, making a total raised of £3,283. • Good Homes Magazine organised a charity raffle and raised £648.08.

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Issue 65 | September to December 2014


Our Fundraisers In Memory of

Craig Beck

For those of you who know me, this was especially a big deal, given my intense fear of heights!

The “Wacky Walkers”; Paula Simmonds, Chloe Simmonds, John Perry, Jennifer Perry, Anna Richens, Patrick O’Connor, Michael Taylor, Lisa Webb, Dave Tillyer, Karen Tillyer, Lorna Perry and Keith Perry, took part in the CRY Heart of London Bridges Walk 2014 and sent in £124, making a total raised of £134.

In Memory of

Gareth Thomas Beckett

• George Smith at Chess Telecom sent in a donation of £357.45. • Sandra Pikesley sent in a donation of £240 raised at her son Gareth’s memorial golf day held at Knebworth Golf Club: “This event has been held for the past eight years and we have always received amazing support from so many kind and loving people.”

In Memory of

Graeme “Tinka” Bell

Gemma Cannell sent in a donation of £600 from the 150 Club at West Denton Fire Station.

In Memory of

Sarah Bennett

Vicky Rowland and Gemma Brice took part in a skydive and raised a total of £4,545.78: “On Saturday 19th July, Gemma and I embarked on a journey to Headcorn in Kent, which was what I can honestly say was the scariest day of our lives! We decided nine months ago to throw ourselves out of a plane in loving memory of our best friend Sarah Bennett, who died suddenly aged just 22 years old from a rare and undetected heart condition, which we now recognise as Bland-White-Garland syndrome.

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We suffered some very big storms in Kent last weekend and were incredibly worried this would prevent us from jumping. (Although secretly relieved I think!) When we set off in the morning at 7:30, the heavens opened and we had sheet rain, forked lightning and the loudest thunder I ever heard. It did not look promising. At 10:00 we were told by Skyline to prepare ourselves that we may not jump, which was by this time really souldestroying, as we were psyched up and ready to go. All was not lost though as by 12:00, the clouds blew away and revealed the most beautiful blue sky we had ever seen! I like to believe we have Sarah to thank for that. Both Gemma and I were terrified when they called our name, but once we got our jumpsuits on, we knew there was no turning back! Luckily enough, our instructors were fantastic throughout and made the experience a lot easier. Gemma was the first to jump. You can see on her video her big, beaming smile as she did which is very reassuring for anyone else who wishes to do the same. Mine however was not quite as flattering but very funny to watch… now! We held a ‘post skydive party’ on Sunday with face painters and a bouncy castle for the kids, then a karaoke in the evening for the adults! It was a lovely turnout despite the torrential rain and storms! CRY’s Representative Julie Donnelly came to give a speech. It was painful, yet lovely, to see her talking to Sarah’s

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Our Fundraisers mum Carole about their experiences of losing a child. It was also a true inspiration to all of our supporters that Julie’s daughter came, as her life was saved by cardiac screening!

In Memory of

Philip Bergman

Adrian Bergman raised £2,211 through running the Windsor Half Marathon 2014.

In Memory of

Dhara Bhatt

Mishcon De Reya took part in the British 10K London Run 2014 and raised £6,494.58

In Memory of

Steven Bicker

All in all it was a fantastic day! Very emotional though with highs and lows, but this is to be expected. I am currently working on next year’s project but unsure how to top this one. Wingwalking, perhaps?!”

In Memory of

Kasia Ber

• Diane and John Ber sent in donations of £195 raised by Holden and Seaton Carew rugby teams and £14.50 from by Dr Chandy’s surgery, making a total raised of £209.50. • Martin Dunn raised £1,000 through various fundraising activities during the year. • “Team Kasia”; John Ber, Diane Ber, Christopher Ber, Peter Bellerby, Julie Bellerby, Janet Brown, Kevin Brown, Karen Robinson, Thomas Robinson, Carl Higgins, Lynn Phillips, Joni Shipp, Leanne Harris, Lisa Quinn, Dawn Lavery, Anita Foster, Claire Burlinson, Peter Lamb, Shirley Lamb, Sarah Osborn, Kyle Osborn, Claire Jones, Mark Jones, Jade Jepson, Arron Watson, Anthony Hardy, Paul Hunt, Chris Brown, Adam Brown, Nathan Lee, Thomas Hunt and Lewis Smith, took part in the CRY Durham Riverside Walk 2014 and raised £417.

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Glen, Jackie and David Bicker sent in a donation of £400 raised by a cricket match, barbeque and raffle at Goodnestone Park Cricket Club. “The annual cricket match was held in my son Steven’s memory, with the Glen Bicker XI v Goodnestone Park CC (Steven’s old cricket club). It was a close game, with victory going to Goodnestone Park. The game was held in their beautiful surroundings on a lovely sunny day. Steven loved it down at the cricket ground, and spent many happy times there. He is missed by so many people.” Glen Bicker.

In Memory of

Louise Bignall

David Jackson raised a total of £398 through taking part in the Bupa Great North Run 2014.

In Memory of

Maxwell Biles

• Elizabeth Biles sent in a donation of £100.

Issue 65 | September to December 2014


Our Fundraisers • North Dorset RFC sent in a donation of £2,596.85 in respect of a summer sevens tournament organised by James Fox: “Cardiac Risk in the Young is a charity very close to the heart of North Dorset Rugby Football Club after losing their club captain Max Biles suddenly in 2009 at the age of 29. In an attempt to help raise funds and the profile of CRY, the club held their own rugby sevens tournament in 2013 with 16 teams taking part which proved to be a huge success. So much so, the tournament took place again in July 2014, this time with 24 teams competing throughout the day. The eventual winners were the Royal Navy Sharks who walked away with the cup after defeating Bryanston Old Boys in a closely contested final.”

It was extremely cold, especially after wading through ice-cold lakes which was the worst part for me! Also, after all the rain and hundreds of people that had started before me, the ground was like a bog! Feet kept getting stuck, so a real challenge! It was so much fun though and a real honour to be running in memory of my three late pals and for CRY! But this is only ‘Race 1′ of my three race challenge (one for each friend) that people have sponsored me for. Race 2 is the Tough Mudder in Henley, which is a massive step up!” “On Saturday 26th April 2014 I completed ‘Race 2′ of my 3-race challenge in honour of my three late friends and to support CRY. This was the Henley Tough Mudder – a 12.5 mile obstacle course with electric fences, ice baths, lots of hills and mud. Great fun, but absolutely shattered after. As you can see, I did it dressed as Spiderman!”

In Memory of

Ben Birch, Chris Davidson and Paul Keen

Paul Mason took part in the Nuts Challenge, Henley Tough Mudder and Winchester Tough Mudder and raised £325: “Here is me at the finish line of the Nuts Challenge on 2nd March 2014. I finished in 1hr 8mins, which was the third best time of the day.

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Our Fundraisers In Memory of

In Memory of

Jack Boulton

Lydia Bird

• David Boulton took part in a charity football match and raised £1,609.71.

Cathy Bird held a cake stall at a recent two day screening event and sent in £909.01.

In Memory of

Steven Blair

• Susan Blair raised £1,474 in respect of her “10 miles for Steven” event. • The Bank of Scotland Foundation sent in a matched giving donation of £773.10 in respect of Julie Wilson and Sharon Hagon, who completed the “10 miles for Steven” event. • Susan Blair sent in £111 raised from a collection tin.

In Memory of

Mathew Blease

• Emma Jolliffe raised £390 through taking part in the Sure Run to the Beat 10K 2014. • Liz Evans sent in a donation of £5,275.42 from the Santa Dash in December. • David and June Boulton sent in total donations of £628.50, of which £500 was from Miller Construction, £15 from friends and £113.50 further donations.

In Memory of

Lyndsey Bowe

Angela and Peter Bowe sent in £760 raised in lieu of gifts in respect of their ruby wedding celebrations.

Mark Blease raised a total of £1,097.31 through taking part in a series of events including the Bupa London 10,000, Colour Run, Triffic Trail 10K, and the Olympic Park Lottery Run.

In Memory of

Ian Bowen

• Sabic UK Petrochemicals sent in a donation of £350.

In Memory of

Graeme Blenkinsop

Lesley Bryant sent in a donation of £100.

• Davina Vaughan organised the raffle of a Christmas cake and raised £100. • Maralyn Bowen sent in a donation of £180 raised from holding a tombola stall in her local Morrisons store.

In Memory of

In Memory of

John Kennedy sent in a donation of £150 raised during a memorial cricket tournament.

Guy Earle sent in donations of £350 in respect of taking part in the TCS New York City Marathon.

Matt Bond

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Wesley Bray

Issue 65 | September to December 2014


Our Fundraisers In Memory of

Alexander Brinck-Johnsen

Anna Brinck-Johnsen raised a total of £790 through taking part in the Sure Run to the Beat 10K 2014.

Loom bands were made and sold by Ella and Edward Jackson (aged 13 and 10) in the CRY colours; rolls were ordered and purchased by a family friend, Anne Sheehey; and other family members helped on the night by selling bingo tickets and filled rolls. Rhys Lewis from Barclays Bank, Brynmawr, attended the night and sold raffle tickets.”

In Memory of

Gregory Brookes

In Memory of

Christopher Britton

Team “Rhythm is a D@ncer”; Carol Forsyth, Keith Britton, Danielle Jones, Karen Britton, Brian Cogdon, Mavis Cogdon, Kellie Pomeroy, Neil Jones, Julie Jones, Clive Jones, Rachel Jones, Mel Wilson, Deborah Bell, Ronnie Wiffin, Susan Wiffin, Ronald Wiffin, Nicola Goldsmith, Vicki Goldsmith, Shelly Goldsmith, Natalie Calvert, Emma Whitfield, David Laskey, Lana Stoker, Lauren Watson, Jim Bell, Terri Senior, Hannah Spencer, Helen Amoah, Danielle Smith, James Smith, Christopher Close and Stephanie Close, took part in the CRY Durham Riverside Walk 2014 and raised £144.

In Memory of

Mark Britton

Andrew Britton organised “A Night for Mark” and sent in a total of £2,415, with an additional £1,000 sent in by Barclays Bank, making a total raised of £3,415: “I organised ‘A Night for Mark’ in memory of my brotherin-law Mark Britton. The night helped raise awareness of the good work that CRY does, with posters and leaflets available for people to read. The room was packed with over 100 people attending the event.

David and Hayley Liepins held the fifth annual golf day in memory of their friend and raised £1,704.88.

In Memory of

Mandy Brooks

Jennie Higgins took part in the BT Rock ‘n’ Roll Liverpool Marathon 2014 and raised £1,883.

In Memory of

David Brown

• Natalie Bridgman sent in total donations of £4,851.31 raised at the Red Heart Ball. “I (Laura) and close friend Natalie Bridgman, 28, from Stubbington, planned and organised a charity ball in memory of David, calling it the Red Heart Ball. We raised almost £5,000 from the Red Heart Ball and Barclays Bank (where Natalie works as branch manager in Park Gate) added a further £4,000. It took us five months to organise the event at the Ageas Bowl in Southampton last September – a year after David’s death. Nothing went wrong and everything went to plan on the night. We wanted everyone to have a good time. We had CRY leaflets on tables and Sue Standing-Fisher volunteered to be a representative for us and spoke to the guests.

The night was a huge success, with live music, bingo, a raffle, an auction and finishing up with a disco. Many local people and businesses gave so generously to ensure there were excellent prizes for the raffle and auction. The atmosphere on the night was amazing, but the night was made even more special by people’s sincere goodwill.

www.c-r-y.org.uk

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Our Fundraisers Although Sue doesn’t work for the charity, she is a massive supporter and raises money for them too as unfortunately she experienced losing her son to sudden adult death. More than 140 people bought a £35 ticket to enjoy a three course meal and listen to popular local band The Stereotypes. There was also a raffle and silent auctions, with prizes donated by a number of local businesses.” Laura Miles.

• Rosalind and Charles Buckler sent in a donation of £200 raised at the Ballands Bowmen Archery Club through holding a raffle and the judges waiving their fee.

In Memory of

Dr Jennifer Bucknell

• Barclays Bank sent in a matched giving donation of £4,000 in respect of the Red Heart Ball. • Kelly Brooks at Strands Hairdressing sent in a donation of £1,923.06 raised at a Strands fundraiser.

In Memory of

Kayla Brown

Louise Cole sent in donations of £246.29 in lieu of floral tributes for her daughter.

• Veronica Bucknell forwarded a donation of £1,000 from John Benn. • Brenda Pyle sent in a cheque for £191 in respect of the Ashill Charity Meat Bingo Team. • Morgan Bailey raised £205 through taking part in the Prudential RideLondon-Surrey 100 2014. • Liz Wilmott sent in £222 in respect of the Bristol Half Marathon.

In Memory of

Stephanie Browne

In Memory of

Jordan Bullock

Margaret Herod sent in £705 raised in respect of the Greensands Ridge Walk.

Shelagh Bullock sent in donations of £835 in lieu of floral tributes for her son.

In Memory of

Leanne Brownhill

• Jessica Lucas sent in a donation of £482.86 raised at The Compasses in Ludlow at a charity Motown night.

In Memory of

Robert Burns

• Tiffany Kendall raised £240 through runnning in the Great Midlands Fun Run 2014.

Chris Fisher completed the Ben Nevis climbing challenge and raised £234.

• Ceri Saunders took part in the Shrewsbury Half Marathon and raised £311.21.

In Memory of

In Memory of

• Charlotte Buckler sent in a donation of £505; £250 was raised through Charlotte’s climb up Kilimanjaro and £255 was raised from friends’ donations.

Mark Bushell donated £2,655.50 in respect of running the Norwich to London Run with his brother and friends to celebrate his 50th birthday.

Alex Buckler

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James Bushell

Issue 65 | September to December 2014


Our Fundraisers In Memory of

Nathan Butler

• Peter Bagnall took part in a coast to coast trek and raised £140. • Angela Butler sent in a donation of £2,000 raised at the Nathan Butler Memorial Cricket Tournament at Porthill Park Cricket Club in respect of a raffle and barbeque, including a donation of £335 from the cricket club management committee: “The annual Nathan Butler Memorial Cricket Tournament took place at Porthill Park Cricket Club on Sunday August 24th 2014 and once again the weather was very kind to us. Dan Hancock worked tirelessly to organise the event which was attended by six local teams, playing six-a-side cricket, and eventually being won by Audley. The day started at 10am, the cricket finished at around 6pm and the party went on until late in the evening and was enjoyed by many of Nathan’s family and friends. The support on the day was outstanding, resulting in such a fantastic amount being raised on the BBQ, raffle and in general donations. Thank you to everyone who turned up, donated and helped to make it such a fabulous day in memory of a fabulous young man!”

In Memory of

Nathan Butler and Jon Haynes

• Lucy Farrington sent in a donation of £440.66 in respect of the MO Team’s Snowdon Trek: “On Sunday 15th June a group of friends and family climbed Snowdon to raise money and awareness in memory of Nathan Butler and Jon Haynes. The 11 mile climb took just under five hours. The group are also holding a Scarlet Masquerade Ball on Friday 11th July at Moddershall Oaks Country Spa Retreat.”

• Lucy Farrington and Penny Holland sent in total donations of £2,116.88 in respect of the Scarlet Masquerade Ball at Moddershall Oaks.

www.c-r-y.org.uk

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Our Fundraisers “The evening included cocktail arrival drinks, a three course meal, fantastic raffle prizes, DJ entertainment and a wonderful, heart-warming speech by CRY supporter Dani West. Everyone looked fantastic in their red frocks and suits and they certainly had their dancing shoes on.” Lucy Farrington.

In Memory of

Yasmin Caldera

• Kim McKinty sent in a donation of £100. • Maryam Brady sent in a donation of £250.

In Memory of

Arabella Campbell

• Amy Drury completed the Mini Mile Race and raised £140. • Basepoint Centres sent in a donation of £546.80 raised during a family fun day. • Peter Togneri took part in the London 2 Brighton Challenge 2014 and raised £482.

In Memory of

Arabella Campbell and Mike

• Barclays Bank sent in a matched giving donation of £500 in respect of the Moddershall Oaks Scarlet Masquerade Ball.

In Memory of

William George Butler

Meg Butler sent in donations of £236.05 in lieu of floral tributes for her husband.

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Penny Spiller raised a total of £650 through taking part in the Bupa Great North Run 2014.

In Memory of

James Campbell

• Karen Campbell forwarded a donation of £1,145 raised through various fundraising activities at the Macmillan Academy.

Issue 65 | September to December 2014


Our Fundraisers • Karen Campbell forwarded a donation of £100 raised by the Macmillan Academy training day blind card sale. • Karen Gotobed took part in the Sutton Beast 10K event and raised £377.50. • Jade Campbell donated £140 in respect of a signed Jenson Button cap.

Andy Campbell said, ‘This event is only the beginning, we will look to make this and similar football competitions part of our efforts to raise awareness of CRY and the work that they do, and maybe help prevent what has happened in our family happening to someone else through screening young people. James was loved by all and that was proven today, he will never be forgotten.’”

• Alison Lloyd took part in the Great North Swim and raised £1,206. • James Day took part in a trekking challenge and raised £970. • Rachel Campbell forwarded a donation of £1,035 raised at a charity football game: “On 5th October at Norton and Stockton Ancients FC, three teams battled it out in a round robin competition for the inaugural James Campbell Memorial Shield. Ex-Middlesbrough player Andy Campbell organised the tournament in memory of his cousin, 16-year-old James, who died last November. ‘Football was just one of James’s passions and he would have been shaking his head in disbelief at the fact that a football tournament has taken place in his memory,’ said mum Karen, ‘we would also like to thank Mick Mulligan, Chairman of Norton and Stockton Ancients for the use of the ground and facilities; the event would not have been possible without his generosity. The shield was donated by Stephen Smith of Hungerbusters and each of the team’s shirts were sponsored very kindly by Taylor Wimpey, MD Mark Leigh. A massive thank you to them and everyone else that supported us on the day.’ The tournament ended with a penalty shoot out, with the Neil Campbell XI victorious over Team Macmillan, the academy where James was a student.

www.c-r-y.org.uk

• Karen Campbell sent in donations of £1,716.50 in lieu of floral tributes for James as well as from flower baskets, plant sales and a collection box. • Karen Campbell donated £347 raised by holding a memorial event, hanging paper owls with messages on a memorial tree: “I bought a pre-lit indoor tree, the type you may use at Christmas, and a friend of my mum’s made paper owls which friends, family and staff at Macmillan Academy were invited to leave a memorial message for James and make a donation for an owl in return.

I knew I wanted to mark James’s first year without us and to also give others the chance to remember him. The tree was left standing for a week to allow students and staff at school to continue to leave messages as not everyone was able to attend on the anniversary itself.”

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Our Fundraisers views down the valley on the fast (37mph) descent to Llangynog. At 50 miles and with the temperature now touching 22C, we reached the welcome lunch stop and checkpoint in the ancient town of Caersws.

In Memory of

Andrew Cannon

George Cannon has donated £100 in lieu of a Christmas gift for Andrew.

In Memory of

Stephen Carey

The final check point was at Dinas Mawddwy just 18 miles from the finish, but with the infamous ‘Hell Fire’ pass to come. We finally reached the summit, with leg muscles going into cramp in a fine drizzle, and after a quick stop for photos made our way down to Bala lake and along its southerly shore to the finish at just after 7pm. We made it!

Joy Bowman and Katy Carey took part in the CRY Durham Riverside Walk 2014 and raised £220.

In Memory of

Mike Casson

Dr Ian Casson sent donations of £2,574.70, including a matched giving donation from Barclays Bank, raised by members of the Birkenhead Victoria Cycling Club taking part in the Wild Wales Challenge: “Bala was shrouded in a mist which had descended over the town and lake during the night. We were greeted in the car park at 7:15am in a temperature of only 5C. Eleven members of the Birkenhead Victoria Cycling Club, along with over 700 other cyclists, were about to embark on one of the toughest one-day cycling events in the country – the Wild Wales Challenge.

As I write this 48 hours later, my legs still aching from the effort, I reflect on a really worthwhile challenge for a good cause and fitting tribute to my younger son Michael. I felt proud to be riding with my elder son, Rob, and in some ways both sons were riding with me again that day. All our team members completed the course without mishap and with two hours to spare. Well done the ‘Vics’! I should like to thank our many supporters, including friends, relatives, work colleagues and employers who have made generous donations to CRY.”

After four miles of easy riding, we were met by the first severe test of the day, the climb (more than 25% in places) over the Berwyn mountain range via Milltir Cerrig (mile of stones). We had escaped the mist and the temperature quickly rose to 14C. Heather was in full bloom over the pass and we were provided with stunning

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Issue 65 | September to December 2014


Our Fundraisers In Memory of

• Tammy Turner completed a virtual swim of the English Channel and raised an additional £1,166.58, making a total raised of £1,400.

Denise Higgins donated £4,137.50, forwarded by Marilyn Cullum, in respect of a fundraising night held on September 20th.

• Barclays Bank sent a matched donation of £1,000 in respect of Tamara Turner’s sponsored swim.

Ben Cavill

“Ben lost his life to an undiagnosed heart condition at the age of 26. For the last year several fundraising events have taken place, including a onesie walk through the streets of Gorleston on Sea. Ben’s mum Linda is in the centre of the pics, the lady beside her in the red top is Denise who organised all of the events.” Marilyn Cullum.

• Gill Clark took part in a virtual swim of the English Channel and raised £124.

In Memory of

Olivia Chase

Sophie Palmer, Juliet Browning, Alex Maxell-Scott, Maddi Cameron, Catherine Price and Kathryn Ellinger took part in the London 2 Brighton Challenge 2014 and raised a total of £6,860.24.

In Memory of

David Mark Chance

Rachel and Trevor Atkinson raised £906.87 through taking part in the Bupa Great North Run 2014.

“We wanted to find a way to celebrate the life of our wonderful friend in a remarkable way this year as 25th May 2014 marked 10 years since we lost our beautiful friend Olivia Chase, aged 15, to long QT syndrome. We saw the London 2 Brighton 100km Challenge took place on this very weekend in May, ending in Brighton on the 25th, so befitting – especially as we all went to school with Olivia in Brighton – and six of us committed to the challenge: Maddi Cameron, Juliet Browning, Catherine Price, Alexander Maxwell-Scott, Sophie Palmer and Kat Ellinger.

In Memory of

John Chapelhow

Judith Chapelhow, Keith Chapelhow, Mark Chapelhow, Helen Pickup, Emma Pickup, Jerry Pickup, Charlotte Cummins and Eileen James took part in the CRY Durham Riverside Walk 2014 and raised £170.

In Memory of

Luke Chapman

• Mr AE Chapman sent in a donation of £400 in memory of his grandson raised by Mr and Mrs Baazman, Pauline Elliker and Geof Soar arranging a musical event.

www.c-r-y.org.uk

We realised Olivia was behind us right from the start as we came across a small field of poppies, poppies being her favourite flower. We found poppies so many times along the route it was like she was with us all the way, pushing us to just keep going. This challenge was a test beyond words – it’s hard to explain the range of highs and lows that we experienced, there were so many points along the route where each one of us could

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Our Fundraisers have easily given up. The incredible bond of our group, constant adrenalin, sheer determination to finish in honour of our friend, as well as the incredible support we received on social media, texts and from passers by, meant that we pushed through an endless multitude of pain barriers to finish walking the 100km in 30 hours.

In Memory of

The organisation of the event and the volunteers on hand couldn’t have been better. From trudging through endless slushy boggy mud trails in pitch black, to seeing dawn break over Ardingly reservoir, this was the best and hardest adventure of our lives. We could not be more proud to say we completed the 100K! – and have raised over £5,000 for CRY. Our finish was marked with a beautiful, sunny Brighton day where the incredibly loving and supportive Chase family, along with friends and family, patiently waited for us. We crossed the finish line to huge cheers and lots of champagne which, happily, went straight to our legs! Big love and thanks to absolutely everyone who gave us such precious encouragement and support. And to those poppies for appearing and guiding us along the way.” Maddi Cameron.

• Viv Christopher forwarded a donation of £801 raised at a ‘70s and ‘80s disco.

Katrina Christopher and Cheryl Christopher-Webber

• Shabaz Ahmed sent in £200 from AA Law Solicitors.

• “Team Trina and Cheryl” took part in the CRY Heart of London Bridges Walk 2014 and sent in an additional £871, making a total raised of £4,506.50.

In Memory of

Tom Clabburn

• Christine Elliot completed the ASICS Greater Manchester Marathon and raised £1,356.50. • Jamie Gavin completed the ASICS Greater Manchester Marathon and raised £890. • Enid and Graham Maguire donated £230 raised at a tea and cakes afternoon: “We were very fortunate with the weather and we had about 60 people attending; quite a few from where we live, backed up by our friends. We shared the event between CRY and Samaritans and were delighted at the amount which was donated. Perhaps the sunny day had something to do with this! We were kept busy most of the three hours we were open with my daughter, Nicola, helping make the teas while we served and mingled. A most enjoyable afternoon with a good result.”

In Memory of

Anthony “Budgie” Child

Jack and Angela Child sent in a donation of £1,541 raised in respect of a raffle, tombola and cake sales.

In Memory of

Samuel Childs

Alison Adams sent in a donation of £120.

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Issue 65 | September to December 2014


Our Fundraisers • Simon Gillett raised £800 through taking part in the Prudential RideLondon-Surrey 100 2014. • Suzanne Fletcher took part in the Lake Geneva Walk and raised £285 through sponsorship.

• Paul Clabburn and Claire Prosser sent in total donations of £525, including £250 raised by Tom’s mum Claire and his sister Ellen at a book stall at the Brentford Festival in Blondin Park, Ealing, on Sunday 7th September. “Many people either knew Tom directly or had heard of him and knew about CRY. Many more stopped and looked at our display so we hope that we have helped to raise awareness.” Claire Prosser.

• Adam Sibley raised £725 through taking part in the Prudential RideLondon-Surrey 100 2014. • Ben Stewart raised £605 through taking part in the Prudential RideLondon-Surrey 100 2014. • “Team Tom VII” took part in the CRY Heart of London Bridges Walk 2014 and sent in an additional £120, making a total raised of £290. • Isabel Turner raised a total of £3,110 through taking part in the Bupa Great North Run 2014. “Isabel raised a fantastic amount for CRY in memory of Tom in her first attempt at the Great North Run.” Claire Prosser.

“Tom’s mum, Claire Prosser, worked tirelessly for CRY. Sadly, Claire also died from a heart condition aged 54 on 1st December 2014.” Paul and Ellen Clabburn.

• Faith Howells raised £370.01 by taking part in the Ealing Half Marathon. “Faith Howells raised £370 and a shedload of awareness when she wore her CRY T-shirt while competing for Tom’s Fund in the Ealing Half Marathon on Sunday, September 28th. In what was Faith’s first half marathon, she also beat her target time of 2 hours 20 minutes by a whopping 18 minutes. ‘I’m a little bit tired but very happy,’ said family friend Faith, a close friend of Tom’s, after the event.” Claire Prosser.

In Memory of

Jamie Clarke

Lucie Playford and Team Clarko sent in a donation of £6,123.65 from taking part in the Great London Swim and a further donation of £150, making a total raised of £6,273.65.

In Memory of

Jonathon Clarke

Claire Wootton held a fun day and raised £1,900.

In Memory of

David Cochrane

Lodge Hopetoun St John sent in a donation of £1,830.50 raised through a sponsored walk. www.c-r-y.org.uk

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Our Fundraisers In Memory of

• Dan Conway sent in donations of £1,451.35 in lieu of floral tributes for his wife.

Sacha Reeves took part in the Virgin Money London Marathon 2014 and sent in further donations, making a total raised of £1,135.

• Mark Mitchell at Lexus Chester sent in a donation of £250.

Jeremy Cole

In Memory of

Ian and Andrew Cooper

In Memory of

Adam Connolly

• Ben Floyd took part in the Bupa Great North Run and raised £2,370. • Edward Blad took part in the Bupa Great North Run and raised £1,371. • Claire Ferguson took part in the Bupa Great North Run and raised £825. • Andrew Tomlinson took part in “The Big Knees Up” and raised £3,337.

In Memory of

Owen Connolly

Shane Hopper took part in the PruHealth World Triathlon and raised £520.

Sandra Cooper and Barrie Cooper took part in the CRY Durham Riverside Walk 2014 and raised £100.

In Memory of

Daisy Cope

• Ben Cope completed the Bogger Challenge and raised £754.50: “The Bogger Challenge was an event where three men travelled a 1,200 mile route from John O’Groats to Land’s End on Honda C90 mopeds (pizza bikes) over five days at an average speed of 30mph in memory of Daisy Ann Cope, who passed away of a heart condition in 2013.” • Sue Naylor sent in £400 raised at a yard sale:

In Memory of

Stephen Connor

• Frank McMahon, Whittle Cricket Club, sent in a donation of £417 raised at a cricket match. • Simon Croft took part in the Bupa Great Manchester Run and raised £970.

In Memory of

Jenny Conway

• John Hill, Manager of The New Smithy Inn, sent in a donation of £326 raised by customers.

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“Because we live on a farm we had quite a collection of goods to sell; bric-a brac, old farm utensils, salvage, and plants which I grow. Many people in the village donated goods, furniture and clothes, so I had quite a collection. I served bacon sandwiches, cakes, tea and coffee to help add to the funds and picnic tables and chairs were put out for visiors to sit on. I sent the cheque in memory of my niece who died June 2013; Daisy Cope, she was 23 years old. She has left a huge hole in our lives.”

In Memory of

Bruce Cousins

• Jackie Cousins sent in £102 in respect of a collectables sale.

Issue 65 | September to December 2014


Our Fundraisers • Jackie and Alan Cousins sent in £277 from an annual get together. “Nathan Fereday and friends organised the annual event at the Monkwood Arms in Rawmarsh in memory of my son Bruce. As usual we held a raffle with prizes donated by friends and family and people paid £1 for each requested song in the disco. Daisy Cousins, Bruce’s three year old niece, sold loom bands which she and her mum had made in the Sheffield United and (by coincidence) CRY colours – red and white. Jane Hamilton, councillor for the Hoober and Manor Farm Ward near Rotherham, donated a Rotherham United football signed by all the current team which we auctioned and made £30.” Jackie Cousins.

Graham Philip, £100; the Barnes family, £100; Brian Hornsby, £100; Karen, Jerry and Elliot Markham, £100; Sarah Davidson, £100; Hugh Howells, £100; Gabriella Pitt, £100; Neil Porter, £250; Florence Bond, £100; Joseph Tassoni, £150; Mark Sinnott, £100; Lisa Chambers, £150; Steven McFarland, £100; Michael Jones, £100; Kirsty Heppenstall, £1,000; Gillian Ellis, £200; Nova Robinson, £100; Douglas Hitchner, £750; Alistair Hooper, £750; Susan Flynn, £1,000; Nicola Smart, £100; Thomas Carr, £100; Justin Halse, £100; Elizabeth and Ken Griffin, £160; Mr and Mrs Beastall, £100; Helen Lunt, £100; John Rosier, £100; Jenny Skinner, £100; Lorraine Huff, £100; and Judy Marsland, £100.

In Memory of

Hayley Crook

Victoria Jones took part in the 2014 Run Hackney Half Marathon and raised £572.50.

In Memory of

Simon Cullum

• Marilyn Cullum forwarded donations totalling £909; including Darby and Liffen holding a golf day, raising £564, and Jo and Di holding a bingo night, raising £170. • Mary Lovewell Blake forwarded a donation of £100 from a lady reading her piece in the local press.

In Memory of

Peter Cox

James Dryden raised a total of £2,083 from taking part in the 2014 Hayling Cycle Ride.

In Memory of

Matthew Cragg

• Paul and Debbie Cragg sent in donations of £1,325.82 in lieu of floral tributes for their son. • Further donations in lieu of floral tributes for Matthew amounted to £7,710, including donations from:

www.c-r-y.org.uk

In Memory of

Tony Cummings

Rebecca Hurst sent £132.50 in respect of T Festival 2014 to celebrate Tony’s 21st birthday.

In Memory of

Max Curtis

Eleanor Curtis, Tamara Klien, Faisal Rahmatallah, Simon Forrest and Angela and Gary Brocklesby raised a total of £2,925 through taking part in Sure Run to the Beat 10K 2014.

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Our Fundraisers In Memory of

Adam Dabell

John Dabell sent in a donation of £700: “We were entertained by a heavenly light show during the 11th annual 6th Form Adam Dabell Memorial Match. Once again there was a very large capacity crowd of extremely good-natured young people. The Sackville vs Imberhorne ‘Old Boys’ match kicked off the evening and, as always, with sheer enthusiasm kept us entertained before the main event. Then, the Imberhorne and Sackville 6th Formers treated us to 90 minutes of excellent football.

Image courtesy of East Grinstead Courier

In Memory of

Katy Daniel

Vanessa Daniel sent in £664.86 from various fundraising events.

In Memory of

Ben Daniels

• Jackie Baker sent in £7,605.31 from Why Not Run 2014. Image courtesy of East Grinstead Courier

When the goals started to come it was Sackville who kept scoring, well into the second half. However, Imberhorne pushed back with great tenacity and, in quite literally the final minutes, secured a 3-3 draw! The match went to penalties and the final score then went to Imberhorne! John Dabell reminded everyone that it was now over 10 years since the death of his son to an undiagnosed heart condition and made special mention of Amy Booer, the 19-year-old who recently died under similar, tragic circumstances. ‘Let’s stop this happening to our lovely young people,’ he said. Several town councillors attended the evening; including Rex Whittaker, leader of the town council, and Mayor Nick Hodges, who attended for the match, had photos taken with both teams and presented the cup, trophy and medals at the end. Nick’s comment was that he had been, as before, most impressed with the standard of the football and by the sheer numbers of young people of the town attending this now well-known community event. CRY is one of our town mayor’s nominated charities for his year in office.”

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• Dianne Mendham sent in £1,444 raised at a quiz night. • Caroline Maxwell forwarded a donation of £506.25 from Bromley District Cricket in respect an annual awards evening: “Bromley District Cricket recently held their annual awards evening for those boys that represented Bromley District at cricket and for girls and boys that played for Bromley in the 2014 London Youth Games cricket event. The evening was attended by over 120 players and parents and hosted by Hayes Cricket Club. Alex Blake was kind enough to attend the awards night and present all the young players with their medals and trophies and tell the audience about his experiences as a Kent county player. One lucky player was delighted to win one of Blakey’s Kent shirts which he brought along for the raffle.

Issue 65 | September to December 2014


Our Fundraisers During the evening an auction was held in aid of the Ben Daniels Memorial Fund. Bromley District Cricket is delighted to work alongside Paul Daniels, Ben’s father, in all that he does for the development of cricket in Bromley and Kent and we very much support the hard work he does raising funds for CRY.”

In Memory of

Conor Delaney

• Tom Reidy took part in the St Peter’s 6th Form vs Teachers Half Marathon and raised £645. • Ben Sutton donated £487 raised through taking part in the Shakespeare Half Marathon 2014.

• Helena Daniels sent in £557 from the Young Leaders in Cricket Awards.

In Memory of

Neil Darby

In Memory of

• Heather Darby sent in a donation of £885. • Nicole Collingwood raised £108.22 through taking part in the Bupa Great North Run 2014.

In Memory of

Chris Dart

Lucy Watson and Clemmie Power raised £592.20 through running the Windsor Half Marathon 2014.

In Memory of

Paul Davies

Matthew Dewhirst

• Sue and Chris Dewhirst sent in donations totalling £334; bag packing at Morrisons, Crewe, raised £310 and the Julie Linn competition raised £24. • Sue and Chris Dewhirst sent in total donations of £5,904.41 in respect of a raffle and “Buy for CRY” event. “Repeat of last years ‘posh’ jumble sale with designer clothes donated by many friends and shops offering end of range items. The amazing team of Shropshire ‘CRY Babes’ came back together to better the amount they raised last year of £3,500.”

Lindsey Harrison raised £526 by taking part in a skydive.

In Memory of

Ellen Davis

Amanda Lysons took part in the Virgin Money London Marathon 2014 and raised £1,191.60.

www.c-r-y.org.uk

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Our Fundraisers • Sue and Chris Dewhirst sent in further donations totalling £925: a bucket collection at Crewe Alexandra FC raised £575 and a sponsored cycle from Mold to Crewe FC raised £350: “Friends Stuart Barley and Paul Elias heard about our appeal in Shropshire and Crewe Alexandra fans also found out that the manager, Steve Davis, is Patron of the CRY for Matthew appeal and wanted to help. They decided to get sponsored to cycle from Mold Alex FC to Crewe Alex FC to coincide with a bucket collection we had planned for the Port Vale match. Steve Davis presented the two cyclists with a signed team shirt which is being auctioned to raise more funds for the appeal.”

In Memory of

Aaron James Dixon

Matthew Rigby took part in the Born Survivor Challenge and raised £1,723.60.

In Memory of

Colin Dodds

Barbara Dodds sent in donations of £475.50 in lieu of floral tributes for her husband.

In Memory of

Martin Doig

Jan Doig, Martin’s wife, completed the third Pathfinder March and raised £500:

• Sue and Chris Dewhirst sent in a donation of £805 raised at screening days in Crewe and Nantwich. • Ullrich Gereke donated £150 in lieu of 50th birthday gifts from her friends.

In Memory of

Andrew Dickinson

• The Stock Exchange Veterans Charity Association sent in a donation of £300. • An awards dinner held by Goodacre UK raised £1,260.96.

In Memory of

Luke Dickinson

Landlord, staff and customers of The Green Squirrel raised £1,810 during a barbeque.

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“On 21st June, myself and my walking partner Liz Thompson undertook the 46 mile Pathfinder March; beginning at RAF Wyton, taking a circular route through the Cambridgeshire countryside and back to RAF Wyton. This was our third Pathfinder March but this year we carried on after the finish and walked back into Huntingdon to Doigy’s favourite pub, The Samuel Pepys, where friends were waiting for us. So a 46 mile walk became a 50 mile walk! We chose to do this in memory of what should have been my husband Martin’s 50th birthday in April 2014.”

In Memory of

Adam Donnelly

Julie Donnelly sent in a donation of £2,890 raised at Adam’s Memorial Ball: “On 20th September 2014 we held the fifth Adam Donnelly Memorial Ball at The Thistle Hotel, Brands Hatch. As it’s 10 years since we lost Adam, we wanted this one to be the biggest and best yet so went for a larger venue. Over 200 attended the evening, enjoying a tasty three course dinner after which Sian (Adam’s sister) gave a short speech updating people of where we are with fundraising for CRY and how many screenings we have done.

Issue 65 | September to December 2014


Our Fundraisers In Memory of

Jean Veronica Dry

Mrs L Bunting sent in donations of £650 in lieu of floral tributes for her mother.

In Memory of

Rebecca Duxbury

This was followed by an auction where people bid very generously for various items. We also had a raffle where there were over 100 different prizes – all donated by individuals or companies. All then took to the dance floor until 1am. We donated £1,000 of the proceeds to the Swiss Cottage School (a school in the London Borough of Camden, accommodating children aged 2–19 with complex difficulties) as they have been raising funds to buy a defibrillator at the school. The remainder of the proceeds were sent to Adam’s Memorial Fund with CRY. As ever, we are so grateful for the very generous support of everyone who attended.”

The Olde England Kiosk held a charity Halloween event and raised £556.60.

In Memory of

David Efemena-Dibie

The Year 9 students at the Campion School, Essex, held various fundraising events and raised £3,000.

In Memory of

Sebastian English

• Mark Davies sent in a donation of £3,547 raised by taking part in the Three Peaks Challenge. • Lord Wandsworth College raised £787.70 during the last year.

In Memory of In Memory of

Bobby Dorka

Sheena Parry took part in the Edinburgh Marathon and raised £460.

In Memory of

Adam Drawbridge

Mrs KA Fleming sent in a donation of £100 in memory of her great nephew.

www.c-r-y.org.uk

Sebastian English and Veronica Thompson

Nicola Thompson sent in donations of £1,295 in lieu of floral tributes for her mother Veronica. It was requested the funds be added to the Sebastian English Memoral Fund.

In Memory of

Amy Evans

• Appleton Wiske Primary School sent in a donation of £115.65.

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Our Fundraisers • Miranda Pye at Georgina’s Café forwarded a donation of £514.19 raised by the staff, owners and customers.

• Lorraine Slade raised a total of £206.39 through taking part in the Bupa Great North Run 2014.

In Memory of

In Memory of

Thomas Fleetwood

Harry Faulkner

James Perrins raised £2,250 through taking part in the Prudential RideLondon-Surrey 100 2014.

• Lewis Southward donated £231 in respect of a memorial run. • Abigail Hartman (aged 9) sent in a donation of £150 raised by walking at her school in memory of her cousin.

In Memory of

Sophia Forrester

• Simon Ffitch sent in a donation of £200.

Katherine Godwin raised a total of £700 through taking part in the Bupa Great North Run 2014.

• KMPG sent in a matched donation of £300 in respect of Berkhamsted Raiders CFC’s fundraising. • Laura Roalfe sent in a donation of £100. • Andy Little took part in the Emery Little wine tasting event and raised £725.

In Memory of

David Fox

Celia and Chris Byford-Fox sent in a donation of £150 in lieu of presents to commemorate David’s birthday.

In Memory of

Josh Fell

• Richard Fell sent in a donation of £250. • Richard and Donna Fell sent in a donation of £180 in respect of Rich’s mother’s 80th birthday party. • A member of the Fells’ village sent in a donation of £171.38. • Hornsea School sent in a donation of £133.38 raised by an enterprise day. • Donna and Rich Fell sent in a donation of £138 raised by people from the village doing lifestyle challenges. • Paul Abrahams raised a total of £676.70 through taking part in the Bupa Great North Run 2014.

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In Memory of

Rhian Nadine Fry

• Colleen Fry sent in a donation of £225 raised from holding a market with raffle and refreshments. “This was the third market held for CRY at the village hall and it was well supported by table top bookings and village residents calling in to ‘browse and buy’ from the stalls, or just popping in to buy refreshments and enjoy socialising. Valerie Mowbray – a neighbour/friend – booked a table and donated the money made to the Rhian Nadine Fry Memorial Fund and Cathy Jones gave her time in helping to serve refreshments. A very enjoyable and rewarding afternoon. Over £900 has been raised holding these market afternoons.” • Colleen Fry sent in a donation of £680 from Waitrose.

Issue 65 | September to December 2014


Our Fundraisers In Memory of

Jay Futter

Sharon Stimpson raised £1,383 through taking part in a tandem skydive.

In Memory of

Stephen Gately

Lisa Varty took part in the Edinburgh Marathon and raised £395.45.

In Memory of

Salena German

In Memory of

Matthew Gadsby

Jackie German forwarded a donation of £105 raised from a collection tin.

David Davies forwarded a donation of £100 on behalf of NRGS.

In Memory of In Memory of

Jake Gallagher

The 6th Form students at Dame Alice Owen’s School held a social event and sent in a donation of £402.

Katie Glynn

Tina and Paul Glynn sent in donations of £406.75 in lieu of floral tributes for their daughter.

In Memory of In Memory of

Lauren Gallagher

Blanche Gallagher sent in a donation of £147 raised from CRY charity box collections.

In Memory of

Sarah Gamble

• Linda and Geoff Goodwin sent in a donation of £100 entitled “Christmas memories”. • Charlie Peak sent in a donation of £467.90 raised from teas, cakes, bric-a-brac and plant sales at Kents Green Vinyard.

In Memory of

“We own a small vineyard – Kents Green Vineyard in Gloucestershire – and each year we have an open day to offer tastings and sales of our English white and sparkling wine. In addition we have teas, coffee, a mountain of homemade cakes and biscuits, brica-brac, plants and garden veg for which we ask a donation. This year we were supporting CRY on behalf of our friends Geoff and Linda Goodwin, and were thrilled to collect £467.90.

Caroline and Peter Gard sent in a donation of £1,200 in lieu of gifts for their joint 60th birthdays.

Mid-September is an interesting time in the vineyard as it is only a couple of weeks until the harvest, and so the grapes are looking ripe and plentiful. The dry, mild weather brought out a good crowd, many of

Glen Jones sent a cheque for £2,912.80 raised by his colleagues at Maplin HQ in respect of the London 2 Paris 24 hour cycle challenge.

Andrew Gard

www.c-r-y.org.uk

Ashley Goodwin

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Our Fundraisers whom stayed for several bottles! Many thanks to all the generous visitors who came along on the day.” Charlie and Nicola Peak, and family.

• Colette Gascoigne sent in a donation of £126.75 raised from Cardinal Newman College charity football match. • Amy Farnworth took part in the Bupa Great Manchester Run 2014 and raised £295. • Michael Eastham took part in the Ridgeway Walk with his son Thomas and raised £190.

In Memory of

David Green

Jannah McCormack took part in a tandem skydive and raised £170.

In Memory of

Leanne Haddrell

Mike and Mary Haddrell took part in the Men’s Health Survival of the Fittest 10K and raised £205.

In Memory of

Hugh Grant

Joanne Holland took part in the Belfast City Marathon and raised £2,418.46.

In Memory of

Jordan Grant

• West View Climbing and Leisure Centre sent in a donation of £427 in respect of a family fitness event. • John and Lisa Grant forwarded total donations of £1,015.92: Joe Dunworth raised £554.42 from a charity fit camp; Friends of Broughton School raised £300 from a charity race night; Sharon Mulvaney raised £71.50 from a dragon boat race and £90 was raised at the time of the events.

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“Sunday 28th September 2014 was to most people a lovely sunny day, however, to Michael and myself it was far too hot as we were about to partake in a challenge consisting of a 10K run with obstacles to overcome, none of which were going to be easy. Oh yes, I forgot to mention, the race was not 10K after all, the organisers waited until we reached what we thought was to be the end and then sent us on another route making it a 14K run with even more obstacles. Grrrr. Michael and myself had been talked into doing the challenge 12 months earlier when we had travelled to Cardiff to support some of our daughter Leanne’s old uni housemates – they completed the challenge for CRY in Leanne’s memory; we had been training hard ever since that day. There were eight of us in our team – six of them being much younger than us – but never mind, we all had a common cause. Even though some had never met Leanne they were all determined to complete this challenge raising money in her memory and for CRY.

Issue 65 | September to December 2014


Our Fundraisers Well after 2hrs 38mins our team finally crossed the finishing line, the whole experience was much harder than either Michael or myself ever thought it would be. In fact, 400 competitors did not finish the course, which I think says something about the whole challenge. Raising just over £600 in Leanne’s memory made the whole painful episode worth every ache and pain. I am sure Leanne was watching over us that day laughing at mum and dad but I am sure she was also very proud of everyone taking part.” Mary Haddrell.

Chidham Ukulele Workshop held a vintage ukulele jam in the Barleycorn public house in Chidham, West Sussex, to raise money for CRY in memory of Matt Hales. The Chidham Ukulele Workshop is run by Matt’s dad, Richard Hales. The vintage ukulele jam was hot on the heels of the Goodwood Revival and ukulele players and the audience were encouraged to come dressed in clothes fashionable in the 1940s, ‘50s, ‘60s and ‘70s. The Chidham Ukulele Workshop was formed in 2010 to provide opportunities for enthusiastic beginners to learn new songs and perform for good causes. Since then, the group have played at local care homes; co-starred with the author Kate Mosse and performed in a concert to celebrate World Laughter Day. The vintage ukulele jam raised £150 for CRY in Matt’s memory and Richard is grateful to who all who played and contributed.”

In Memory of

Matt Hadfield

• Andrew Hunt raised £1,560 through taking part in the Prudential RideLondon-Surrey 100 2014. • Oliver Tebbutt raised £1,085 through taking part in the Prudential RideLondon-Surrey 100 2014. • Will Arkell and Tim Jaggard raised £1,635 through taking part in the Prudential RideLondon-Surrey 100 2014. • “Team Matt” took part in the CRY Heart of London Bridges Walk 2014 and sent in an additional £270, making a total raised of £1,885.

In Memory of In Memory of

Matt Hales

Richard Hales forwarded a donation of £150 raised at the vintage ukulele jam: “On Wednesday 24th September the

www.c-r-y.org.uk

Shamil Hamid

• Emersons Green Primary School held a performance of Aladdin and raised £273.71. • Maisa Patel donated £150 raised from selling cakes in memory of her nephew. 59


Our Fundraisers In Memory of

Kyle Hancock

Ian and Debbie Hancock sent in a donation of £3,000 from various fundraising events.

In Memory of

Ken Hau

Misti Delby donated £1,217.82 raised from a headshave.

In Memory of In Memory of

Thomas Hardman

• Daniel Field took part in the TH96 Charity Challenge and raised £356. • The FPHS Team took part in TH96 Charity Challenge and raised £204.44. • Alitia Jefferies took part in the Hampton Court Swim and raised £215.

Sarah Hayes

Helen Hayes forwared a donation of £825 raised by Sarah’s family and friends at Sarah’s Cake Day.

In Memory of

Natalie Herbert

Danny Jones and Georgia Horsley sent in a donation of £5,000 in respect of winning an episode of “All Star Mr & Mrs”.

In Memory of

Ryan Harkness

Jane Ridge sent in donations totalling £444.85.

In Memory of

Graham Harrison

John and Judy Harrison sent in a donation of £1,805 raised in respect of John taking part in the Virgin Money London Marathon 2014 and a race night.

In Memory of

Joe Herrington

• Craig Nethercott completed the Iron Man Challenge and raised £230. • Jacqueline and Mark Evers took part in the CRY Heart of London Bridges Walk 2014 and sent in an additional £120, making a total raised of £190.

In Memory of In Memory of

David Harrop and Pippa Mary Flitcroft

Jonathan Flitcroft sent in donations of £240 in lieu of floral tributes for his late mother, Pippa Mary Flitcroft.

In Memory of

Jason Hart

Jaime Welch took part in the “Back 2 The Trenches” event and raised £165.

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Matthew Hesmondhalgh

• Sarah Taylor sent in a donation of £270 raised by holding a twilight treasure hunt: “On Saturday 13th September, 14 cars took part in a twilight treasure hunt in memory of Matt Hesmondhalgh. The cars left Catterall Village Hall from 4:30pm to 6pm after completing a fun driving skill test. They then followed a series of clues that had to be solved to end up at Cobble Hey Gardens for evening refreshments. On

Issue 65 | September to December 2014


Our Fundraisers route passengers had to collect seven ‘treasures’, one for each colour of the rainbow.

In Memory of

Everyone who took part went home with a prize from meal vouchers to wine, chocolates and champagne and a snail was awarded for the booby prize. Money raised will go towards the cost of a screening session at Garstang High School.”

Joe Marsh at Dinnington Racing Club forwarded a donation of £1,020 raised through the Pete Hinchliffe Memorial Cycle.

Pete Hinchliffe

In Memory of

Ian Hoggarth

• Louise Pullan sent in a donation of £460. • Richard Colley took part in the Ironman UK Triathlon and raised £947.85.

In Memory of

Paris Holden

Gemma Harte raised a total of £270 through taking part in the Sure Run to the Beat 10K 2014.

• Amy McWhirter forwarded a donation of £300 on behalf of the Winmarleigh Young Farmers Club.

In Memory of

Steven Hicks

Robert Hicks, Steven’s father, forwarded a donation of £1,500 raised by “family, friends, work colleagues and a charity football match by his team mates who worked tirelessly in celebrating Steven’s short life.”

In Memory of

Nick Holland

• Gemma Holland sent in donation for £500 for monies raised during their annual caravan rally. • Gemma Clayton took part in the Three Peaks Challenge and raised £120.

In Memory of

Philip Holland

In Memory of

Laura Hillier

Tony and Joan Hillier sent in total donations of £1,036.45: £350 was received from S W Wreford & Sons; Mrs J Adams and Judy Peck sent donations of £10 each in respect of the Great Swim Series; £566.45 was raised from a CRY stall at the Blisworth Canal Festival canal; and £100 was donated by Mr and Mrs Eady.

www.c-r-y.org.uk

Jim and Barbara Holland sent in a donation of £250 in memory of their son.

In Memory of

Philippa Holmes

Fiona Holmes took part in the Climb Kilimanjaro event and raised £3,708.

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Our Fundraisers In Memory of

Jonathan Hooper

Doreen and David Jolly sent in donations totalling £326; £265 was raised at a strawberry tea.

In Memory of

Joseph Horkan

• Andrew Smith raised £820 through taking part in the Prudential RideLondon-Surrey 100 2014. • Sean Horkan raised £1,258 through taking part in the Prudential RideLondon-Surrey 100 2014. • Sarah Gilmore raised £985 through taking part in the Prudential RideLondon-Surrey 100 2014.

“On 23rd September we held a fundraising event in memory of my son, Mark Hudson. I belong to a sewing group based in Loughborough. The owner of the shop, Sue Copeman, came up with the brilliant idea of inviting Heather Jacks, the winner of The Great British Sewing Bee series, to come and give us a talk at the local village hall. Heather gave a very amusing insight into her trials and tribulations throughout the filming and of becoming the eventual and well deserved winner. Many people donated tombola prizes and Pfaff donated a fabulous sewing machine for the raffle. We all had a great evening fuelled by nibbles and wine and raised the staggering amount of £1,035! Mark’s aunt also gave a moving speech reminding us of the reason we were all there. We will never get over losing Mark nearly two years ago now but united as family and friends, we are determined to help raise the profile of CRY.”

• Sean and Beverley Horkan took part in the La Mormotte Cycle and raised £2,391.02.

In Memory of

Stewart Howard

• Jane Howard and some friends arranged a sale in St Cuthbert Hall and raised £580. • Jane Howard sent in a donation of £280 raised in respect of a stall at the turning on of the Christmas lights in Thetford.

In Memory of

Paul Hubbard

Wincanton-Screwfix DC sent in £851.29 raised in respect of a memorial night and football match.

In Memory of

Mark Hudson

Karin Rouse sent in a donation of £1,035 raised from the Woodhouse Eaves village hall charity event:

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From left to right: Heather Jacks, Sue, Karin, David, Jill and Hayley

In Memory of

Stuart Hudson

Lorraine Barrett took part in the BT Fells Walk and raised £390.

In Memory of

Emma Hurlbut

“Team Emma”; Paula Hurlbut, John Kilroe and Jennifer Peskett, took part in the CRY Heart of London Bridges Walk 2014 and raised £280.

In Memory of

Camilla Irvine

Nicola Spurway sent in donations of £100 in lieu of birthday gifts. Issue 65 | September to December 2014


Our Fundraisers In Memory of

Andrew Jackson

David Tinkler took part in a coast to coast event and raised £212.

In Memory of

Nick Jarram

Chloe Precey took part in a skydive and raised £965.

In Memory of

Paul Jevon

Jamie Caswell sent in a donation of £750 in respect of a golf day.

In Memory of

Barry Johnston

Allan Wales took part in the Jogle in June event and raised £415.

In Memory of

Ethan Jones

In Memory of

• Keith Weston sent in donations totalling £520 in respect of talks given in memory of Ethan.

Dave and Jenny Jennings forwarded a donation of £1,700, raised at the Mid Kent Golf Club.

• Fiona Spurling sent in a donation of £140.

Nathan Jennings

“Mid Kent Golf Club were proud to host their annual CRY charity golf day on Saturday 25th October. The event is organised by Dave and Jenny Jennings in memory of their son Nathan who died suddenly whilst playing golf, having previously shown no signs of ill health. Once again the Mid Kent members did the Jennings’ hard work proud and a fantastic sum of £1,700 was raised for the charity. Dave Jennings is pictured here with the winner of the golf competition, Liam Cook (on the left), and the winner in the raffle, Guy Lear.” Caroline Greenfield, Mid Kent Golf Club.

• The Leatherhead Round Table have donated £500 raised during the 2014 Car Run event from Bookham to The Rural Life Centre, Farnham, in September. • Keith Weston forwarded a donation of £150 raised through Tasu Holden and her daughter Alice holding a cake sale.

In Memory of

Melvyn Jones

Lynn Jones sent in a donation of £109 from friends and colleagues in memory of her husband.

In Memory of

Ricky Jones

Charlotte Swanston took part in a skydive and raised £475.

In Memory of

Lee Jordan

The “Leegion of Doom”; Paul Allen, Nora Alexandra, Sam Allen and Phil Gardiner, took part in the Tough Mudder and raised £1,601.25. www.c-r-y.org.uk

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Our Fundraisers In Memory of

Valda Joan Joyce

Lynn Taylor sent in donations of £437.50 in lieu of floral tributes for her aunt.

In Memory of

Matthew James Kamis

Katie Dawson took part in a skydive and raised £255.

In Memory of

Eleanor Rose Keeler

Chris Keeler took part in the Edinburgh Marathon Festival Half Marathon 2014 and raised £1,530. “It is five years since Eleanor, our beloved daughter, died so suddenly leaving our family in a state of shock and bewilderment. We learned that she had suffered from a congenital arterial abnormality that was ‘rarer than rare’, only having one artery and the remaining one was ‘wired up’ incorrectly and was kinked. How did she ever manage to lead such a normal life, a very bright, intelligent, sensitive, thoughtful and wonderful daughter and sibling? There was no indication that there was anything amiss as she appeared to be fit and healthy. We wanted to do something in her memory to mark what would have been Eleanor’s 25th birthday and the five years since her death so my husband, Chris, decided to run a half marathon with any money raised going to CRY. He chose the Edinburgh Half Marathon because it took place only four days before Eleanor would have been 25, which would have been on 29th May. Chris hasn’t run seriously for years (although he had run a sub-three hour London Marathon years ago) so found the training really difficult but would not give up, knowing that it was in memory of Eleanor and for such a good cause. On the day, the weather was not good; windy and raining. Chris persevered and in pain as a foot injury had hampered training, but he managed to finish in the top half in his age group.” Annette Keeler.

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In Memory of

Joseph Kellogg

Blake Fallows took part in the Ramathon event and raised £160.

In Memory of

Jennifer Kerwood

• Fiona Clayton sent in a donation of £170 raised at a tea party in memory of her neice. • Sonja Hodgson sent in a total of £505 in respect of the Sure Run to the Beat 10K 2014. • Amy North raised £482 through taking part in the Sure Run to the Beat 10K 2014 and a cake sale the following day: “My friend (Lydia) and I spent a total of 13 hours baking over the weekend in preparation. It was held in Elizabeth House in Waterloo and the response was fantastic. The workers in the building were incredibly generous with many donating money to charity as well as buying the cakes, biscuits and goodies. We made a huge selection – gingerbread men, Rice Krispie treats, fudge, tarts, rocky road, cookies, brownies, cupcake burgers as well as cakes, cakes and more cakes. I did the run with my good friend Sonja Hodgson in memory of our friend Jenny Kerwood.” Issue 65 | September to December 2014


Our Fundraisers The guest speaker on the day was Tim Butt. Tim had just returned from South America where he had been collecting money for CRY through his CRYATHLON project. Tim was, in fact, a classmate of Jenny’s from school so it was fantastic to get him to speak (he only returned from South America that morning) and for him to explain how he was collecting money for CRY.”

• Sonja Hodgson took part in a skydive and raised £420.79:

• Martin Kerwood sent in a donation of £2,101.05 from a charity football match; myheart member Tim Butt spoke at the event: “The game was between a group of Ross’s friends and a group of Ollie’s (Jenny’s cousin’s boyfriend) friends. Not only was there the football game but there were stalls, food, a BBQ and a raffle. Billericay Town FC donated their facilities free of charge, a friend provided the food, again free of charge, and we managed to get raffle prizes from local businesses.

www.c-r-y.org.uk

“It’s now over two years since my dear friend Jenny Kerwood, playing for the Hutton FC Ladies, collapsed on the football field during a training session, suffering a cardiac arrest, falling victim to a rare undiagnosed heart condition, ending her life at the young age of just 22. In Jenny’s memory, thanks to Skydive For Free, I joined her above the clouds on the 21st of July and skydived for a good cause – the Cardiac Risk in the Young charity. It was indescribable, incredible, just awesome! I was the only one excited and looking forward to it. All my friends and family thought I was just crazy! Once we got on the plane and the first couple jumped off and I knew I was next, that was the only second where I went: GULP, I’m next!

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Our Fundraisers For the first 45 seconds when we were in free fall, I couldn’t stop screaming/cheering! I was loving it and so glad to get the heart symbol and kiss to the camera before the parachute came out. Then suddenly everything went silent! I was able to get myself together again and actually breathe and look around and enjoy the view much more. Del, the diver, allowed me to steer us for a bit, which made me dizzy – but it was a cool feeling. Once we landed, I needed a couple of seconds to get my breath and senses back! But it was definitely worth it! When friends asked me if I would do it again, I said why? Been there, done that, loved it! I work on a plane every day, now I know how it feels to actually jump off it!”

In Memory of

Phillip “Larry” Lamb

Andrew Webbe sent in a donation of £191.65 raised during a study day.

In Memory of

Robert Lancaster

Margaret Lancaster forwarded total donations of £300 on behalf of a shooting syndicate.

In Memory of

Michael Land

• Ruth Cain held a coffee morning with various stalls and raised £320: “It was a lovely sunny day and friends and family gathered round to raise funds for CRY. Numerous stalls including crafts, sweets and a lucky dip were held along with a raffle. We sold bacon and sausage butties which went down very well.”

In Memory of

James King

James King Snr donated £460 raised at a charity evening.

In Memory of

Amy Kirkby

Sarah Clarke took part in the Great North Swim and raised £958.

In Memory of

Jack Ladley

Brenda Ladley raised £930 at her ruby wedding evening.

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• Kara Leece raised £404 by taking part in the “round the island” 72 mile walk in 24 hours.

Issue 65 | September to December 2014


Our Fundraisers • Allen Haywood donated £1,020 raised at a football tournament: “The five-a-side football tournament was a total success with 16 teams competing passionately for the Michael Land Memorial Plate. It was a fun day with activities for children including bouncy castles and slides. There was also a grand raffle and a ‘Whiskey Roll’ organised by Michael’s older brother Frazer. The co-owner of the venue (A1 Football Factory; Pontefract) is Paul Green who plays for Rotherham United and Republic of Ireland. He presented the trophy to the eventual winners, ‘Beersalona’, who were absolutely delighted to be the champions, as they have all been supporting CRY for the last nine years since their close friend Jonathan Leigh passed away from sudden arrhythmic death syndrome (SADS) in 2005. Photos from the day include the winning team with Paul Green and the Michael Land Memorial Plate, and also Frazer presenting the winner of the Whiskey Roll.”

“Staff members from Specsavers Bradford, Darley Street, Girlington, Otley and Ilkley walked a total of 20.8 miles in six and a half hours between stores on their valuable days off in order to raise money for CRY.”

Walkers pictured: Paul Garnett, Perry Seenath, Lindsey Bassra, Tom Pickering, Rob Bentley, Michelle Bastow, Linda Maloney, James and Aimee Ellison. Not pictured: Kelly Dack, Michael Wright and Sarah Davies.

• Pete Rook, Paul Garnett and Robert Bentley sent in further total donations of £232.50 in respect of the marathon walk. • Bradford Specsavers sent in a donation of £520 in respect of the marathon walk.

In Memory of

Kris Ledgard

• Peter Ledgard donated £449.79 raised from a bucket collection at a Leicester Riders basketball game and £241.40 from a Northants Cricket team NatWest T20 Blast game, making a total raised of £691.19.

• Paul Garnett at Specsavers Opticians sent in £947 raised through taking part in a marathon walk between four stores. www.c-r-y.org.uk

• Alex Barrow sent in a donation of £10,900 in respect of a 24hr ice hockey event, with further donations from: Mark Woolf, £225; Sam Fairhurst, £355; Andy Guthrie, £110; Craig Clarke, £165; Christopher Gill, £135; Jamie, £105; Jay Mcfadyen, £216; Andrew Slevin, £210; Rachael Clough, £205; David Channel, £105; Scott Van Slyck, £100; Samantha Burger, £305; and Karl Montford, £340, making a total raised of £13,476:

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Our Fundraisers “Players across seven MK based teams including men’s, women’s and juniors plus visiting players from other locations came together on 12th and 13th July to raise funds for Cardiac Risk in the Young (CRY) in memory of former player Kris Ledgard who sadly passed away aged just 22. All of the money raised will go to the Kris Ledgard Memorial Fund and will be used by CRY to screen young people aged 14 to 35 from Milton Keynes and surrounding areas for cardiac abnormalities to help reduce the frequency of young sudden cardiac death.

In total 180 players and referees took part in the 24 hour sponsored match over Saturday and Sunday and the memorial game held on Sunday evening. These participants alone raised over £10,000, with the remaining contribution coming from entry fees to the memorial game, sales of ice hockey shirts designed especially for the weekend, donations, raffles and other activities. Local DJ Karl Montford played music during the intervals and stoppages throughout the entire 24 hour game. CRY volunteers were also on hand to raise awareness of cardiac abnormalities, defibrillator suppliers Cardiac Aid attended and pledged to donate £100 for each defibrillator purchased up until September. Staff from Body Limits Sports Injury Clinic and Gym and MK Podiatry donated free sessions to players to help recovery after their time on the ice.

After captaining one side of the memorial game, Kris’s brother Tomas Ledgard, director of the Kris Ledgard Foundation and Memorial Fund, said “This weekend has been fantastic and extremely emotional for all involved. We’re so grateful for everyone who took on our cause without question and raised such a huge sum. At the end of the day hockey players love to play hockey. The money we have raised over this weekend will enable CRY to screen 430 local, young people and goes a long way to help us reach our current target of £100,000 for the Kris Ledgard Memorial Fund.”

• Janette Ledgard took part in the Adidas Half Marathon and raised £550. • Tomas Ledgard took part in the Adidas Half Marathon and raised £1,223. • Will Tygrys took part in a triathlon and raised £509.

In Memory of

Martyn Jordan Lee

• Lianne McDonald took part in the Bupa Great Manchester Run 2014 and raised £270. • Kate Malone took part in the Bupa Great Manchester Run 2014 and raised £212.

In Memory of

Jonathan Leigh

• Nicola Storr sent in total donations of £1,622 in respect of the Swishing and Shopping fundraiser:

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Issue 65 | September to December 2014


Our Fundraisers “I decided to organise a slightly different charity event this year to raise money in memory of my brother, Jonathan Leigh... so me and my friends decided to SWISH AND SHOP! We sold 150 tickets to ladies who brought their unwanted clothes, shoes, handbags and accessories, and we had 12 stalls selling various gifts, trinkets and beauty treatments.

• Nicola Storr forwarded a donation of £483 raised at the CRY screening day held at St Giles’s Church in Pontefract: “Alongside the screening, we were selling refreshments, had a tombola, children’s colouring competition and craft stall. A total of 100 young people were screened and apparently it’s the first time a CRY screening day has been held in a church... the team were very impressed with the venue and the day as a whole!” The swishing items were on display for people to view until we opened the swishing at 8pm. Everyone could then choose the new items they would like and exchange them for tokens they received on arrival.

In Memory of

John-Paul Lipscomb-Stevens

Terry Curtis sent £1,250 in respect of donations from the members of Quainton Golf Society.

In Memory of

Kira Lloyd and Cyril Streeter

We also sold raffle tickets, with prizes which were generously donated by local businesses. It was a fantastic night and everyone seemed to really love it! I’ve had emails since asking when we’re planning the next! All in all, a great night raising £1,622 in memory of my brother.”

www.c-r-y.org.uk

Andrew and Melanie Lloyd sent in donations of £362 in lieu of floral tributes for Kira’s great grandfather, Cyril Streeter. A further donation of £60 was from Kira’s uncle and his fellow work colleagues, making a total raised of £422.

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Our Fundraisers In Memory of

James Loach

Yvette Loach sent £200 raised by Claire Loach, Rebecca Hoffman, Amy Loach and Cassandra Oliver who did a charity fun run in memory of Claire, Rebecca and Amy’s brother.

In Memory of

Aaron Lundy

• Gary McGrotty took part in the Virgin Money London Marathon 2014 and sent in a further £1,270, making a total raised of £1,800. • Kealan Harman raised £710 through taking part in the Prudential RideLondon-Surrey 100 2014. • Garry McGrotty took part in a charity golf day and raised £1,575.

In Memory of

Matthew Long

Marc Long took part in an “I’m Batman (for 69 days)” challenge and raised £156.40.

In Memory of

Margaret Mackenzie

Alva Smollett sent in donations of £145 in lieu of floral tributes for her aunt.

In Memory of

Martyn Luckett

Brenda Luckett sent in £2,710 raised through the annual Motorocycle Trials School, including a donation of £100 from Nick Hunt raised through a charity auction.

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In Memory of

Andrew Macleod

• Alison Dourley took part in the Paris Marathon and raised £1,056.34. • Murdo and Dolina Macleod sent in

Issue 65 | September to December 2014


Our Fundraisers total donations of £604.68, including £206.10 from the parents and aunties of Stornoway playgroup who completed the Ice Bucket Challenge and £124.68 in respect of screening. • Murdo Macleod forwarded a donation of £200 from Angus MacNeil MP who participated in an Ipsos Mori survey and agreed a fee to be donated to CRY. • Mairi Macleod sent in £250 received from the Nicolson Institute parent council. • Dena Macleod sent in £750 received on behalf of the management, staff and board members of the local housing association Hebridean Housing Partnership. • Agnieszka Janicka at Seven Atlantic sent in a donation of £309.98.

In Memory of

Primary School by selling CRY wristbands, holding a cake sale and a dress-down day.

In Memory of

Ryan Mance

“Team Ryan Mance” took part in the CRY Heart of London Bridges Walk 2014 and sent in an additional £240, making a total raised of £345.

In Memory of

Leon Ashley Manners

Anthony and Nicola Harsley raised £410.36 through taking part in the Bupa Great North Run 2014.

Luke Macleod

Dave Macleod raised £535 through taking part in the Bupa Great North Run 2014.

In Memory of

John Magowan

Kate Baxter took part in the Edinburgh Half Marathon 2014 and raised £805.

In Memory of

Lewis Marsh

• Gill Weston forwarded donations totalling £15,200 raised from a charity football match, musical evenings and other fundraising fayres and quiz nights.

In Memory of

Lyra Maharaj

• Alex Gentry-Maharaj sent in donations totalling £904.25, including; donations from Cliveden Kindergarten of £500, a Women’s Institute health picnic in Regent’s Park, and donations from neighbours in respect of the CRY Heart of London Bridges Walk. • Linda Treacy forwarded a donation of £725.98 raised by the pupils, staff and parents at Poplar

www.c-r-y.org.uk

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Our Fundraisers was really happy with this time as I had never cycled more than 30 miles before this. Crossing the finish line was such a great feeling and I will be looking to do something similar next year.” David Brambley. The two football teams from the casts of Les Misérable and Phantom of the Opera

Chris Key, Les Misérable

“A wonderful family day at Bromley football club organised by Chris Key, UK Resident Director of Les Miserable. We were not only entertained by their football skills but also some songs from the shows.” Gill Weston. • Vodafone sent a match giving donation of £200 in respect of David Brambley taking part in the Vodafone Big Bold event. “It was an amazing experience and something that I had never done before in my life. This really was a massive challenge for me to cycle 70 miles from Vodafone HQ in Newbury to the Olympic stadium in London. The challenge was made even more difficult by me bruising my coccyx going over a speed bump at the halfway checkpoint – which meant I cycled the remaining 35 miles with this – but that just added to the challenge. During the ride we passed some of London’s most famous landmarks including the Royal Albert Hall, Regent Street, Shaftesbury Avenue, Piccadilly Circus and Hyde Park. Cycling through Central London having already completed 55 miles was a real rush but also the traffic and the constant stop start at the lights meant it was very tough going. I completed the ride in just under seven hours and

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In Memory of

John Marshall

Maureen Marshall sent in a donation of £250 from the collection boxes at Edge Hill University and a donation of £2,000 from Skelmersdale Athletic Girls Football Club, making a total raised of £2,250.

In Memory of

Adrian Martinez

Lisa Durbin raised £1,205 from taking part in a skydive.

In Memory of

Dean Mason

• Gwenfair Mason sent in a donation of £650 raised at a vintage day held by the Camrose Vintage Day Show Committee and £408.54 raised

Issue 65 | September to December 2014


Our Fundraisers at Pembroke carnival, making a total raised of £1,058.54.

In Memory of

Áine McCann

• Philip Wilson donated £1,000 raised during his year of office as Portreeve of Laugharne.

Aravon McCann forwarded a donation of £135; £125 raised from rehoming kittens and £10 from the local post office reselling gift bags.

In Memory of

Claire Mayger

Alan Mayger raised £1,822 through taking part in the Prudential RideLondon-Surrey 100 2014.

In Memory of

In Memory of

Conor McCooey

Gerard Gilmore sent in a donation of £150.

Pete McAvoy

• Gordon Murch was presented with a cheque for £4,556.56 on Sunday 17th August in memory of Peter McAvoy (junior).

In Memory of

Ian McDonald

• Phillip Hendon at TK Maxx, Kew, sent in a donation of £2,500. • Gavin Keen took part in a skydive world record attempt and raised £235. • Darren Taylor took part in a skydive and raised £395.

In Memory of

Paul McGlynn

• Peter McAvoy forwarded a donation of £1,134 from friends and family and sent a further donation of £196, making a total raised of £1,330.

Patsy Gilthorpe sent in a donation of £765 raised at the annual “Coffee at McGlynn’s” event held in July:

• Sylvia Bisset sent in a donation of £444.44. • Members of the Dunkeld and District Stathspey and Reel Society sent in a donation of £250. • Wanda Wilson sent in a donation of £100.

In Memory of

John McCall

Raymond Gilmore sent in a donation of £445 raised by the old boys reunion of ex-Royal School Armagh pupils. www.c-r-y.org.uk

“It was our sixth coffee morning and we are still very moved by the continued support of all our family, friends and neighbours old and new.”

In Memory of

Kyle McInerney

Rosemarie Brady sent in a donation of £1,538.50 from Rutlish School raised through cake sales and various competitions.

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Our Fundraisers In Memory of

Stephanie McLean

Team “White Teddy”; Lesley McLean, Joanna McLean, Neil McLean, Tammi McLean, Kyle McLean, Michael Carling, Maureen Heley, Derek Heley, Kate Fagleman, Georgi Ellison, Andrew Bolland, Adam Cogan and Sophie Crumsley, took part in the CRY Durham Riverside Walk 2014 and raised £345.

In Memory of

Simon McNamara

Mike McNamara sent in a donation of £404 raised through the Pinks v Intimidatingly Cool XI match.

In Memory of

Luke Meekings

Sue Meekings sent in a donation of £250: “On Sunday 22nd June a group of Luke’s friends and family undertook a walk on the South Downs in memory of Luke. We walked approximately 11km and finished back at our house for a BBQ and balloon release in memory of Luke.

In Memory of

Leona Mello

Alex Kaitell took part in the CRY Durham Riverside Walk 2014 and raised £145.

In Memory of

Ian Merchant

Barbara and Dennis Merchant sent in a donation of £100.

In Memory of

Josh Merrick

• Burnage Rugby Club sent in a donation of £121.82. • Barclays Bank, Wilmslow, sent in a donation of £102.63. • Eileen Prendergast sent in donations totalling £145: Jon and Jan Brindly, Peter and Jan Katovas, Alan Cowcock and Ann and Dave donated £35; St Catherine of Sienna School donated £80; and £30 represents a birthday present to Simon Merrick. • Sarah Bateman took part in the Bupa Great Manchester Run and raised £270.

This is the first year since Luke died that we were unable to take part in the CRY Heart of London Bridges Walk so decided to do our own local alternative, raising £250 for Luke’s memorial fund.”

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• Anne Prendergast took part in the Bupa Great Manchester Run and raised £530. • Eileen Prendergast forwarded a donation of £320.45: Miller Newsagents donated £82.94;

Issue 65 | September to December 2014


Our Fundraisers Gavin Smith and friends running the Virgin Money London Marathon 2014 raised £187; and £50.51 was from friends of Josh’s father. • Gary and Liesl Flaherty sent in an auction donation of £480 in respect of the Pink Pig and Presecco Ball. • Claire Livingston took part in the Bupa Great Manchester Run and raised £294.57. • Elaine Allan took part in the Bupa Great Manchester Run and raised £460. • Hannah Caruana took part in the Bupa Great Manchester Run and raised a total of £370. • Shaun Webb donated £450 in respect of an auction. • Gary Flaherty took part in the Total Warrior event and sent in a donation of £1,142.50, including a matched donation of £750 from United Utilities. • Sarah Milns forwarded a donation of £300 from BMI Alexandra Hospital, Cheshire. • Didsbury Garden Services donated £480 raised at an auction. • David Rees took part in the Ironman UK 2014 challenge and raised £1,260.

• Paul and Nicola Merriman forwarded a donation of £392 from Waitrose. • Nicola Merriman forwarded a donation of £100 from Mandy Taylor at the Transport and Warehouse Department after a recent screening.

In Memory of

John Millar

• Kirsty MacMillan sent in a donation of £324 in respect of the Tough Mudder challenge. • CRY was nominated by Tam Echlin at Shell UK to receive a donation of £350 from the Brent Alpha Charity Fund.

In Memory of

Shelly Mills and Freda Fleming

Andrew Fleming raised £365 through running the Windsor Half Marathon 2014.

In Memory of

Mitesh Mistry

Penny Cook took part in the Colour Me Rad, Leeds, and raised £385.16.

In Memory of

Josh Merrick and Rab Niven

Julian Ross sent in donations of £100 made of behalf of Burnage RFC in lieu of floral tributes for the late Rab Niven.

In Memory of

Elizabeth Mockler

Nicola Lloyd raised £535 from taking part in the London 2 Brighton 100km Challenge 2014.

In Memory of

Richard Merriman

• Paul and Nicola Merriman sent in a donation of £532.18 in respect of a recent screening event and a further donation of £550, making a total raised of £1,082.18.

www.c-r-y.org.uk

In Memory of

Charlie Morettes

Allison Spalding held a Tiger Ball and raised £2,465.

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Our Fundraisers In Memory of

Jonathan Morgan

Sue Ainsworth sent in a donation of £528.62 raised through screening donations and a donation of £231 raised during the Egton Gallon Walk, making a total raised of £759.62.

In Memory of

Levon Morland

Aran Morland and Simon Heseltine raised £715 through taking part in the Bupa Great North Run 2014.

In Memory of

Nicholas Morris

Elizabeth Morris, family and friends donated £1,000: “£1,000 was raised at our biennial golf day which took place at Princes Risborough Golf Club, Princes Risborough, Bucks, on Saturday 6th September 2014 in memory of our late son and brother; 31 golfers took part in the day and friends and families joined them later for prize-giving and a raffle.”

In Memory of

Owen Morris

• Celyn Owens took part in the Tenby Ironman Race and raised £1,195.68. • Cathy Bird sent in a donation of £3,013.82 in respect of a summer ball. • Philip Morgan, Go Compare, sent in a donation of £1,000. • Anthony Toye raised a total of £120 through taking part in the Prudential RideLondon-Surrey 100 2014. • Belinda Donnelly forwarded a donation of £300 raised through taking part in a team triathlon. • Sarah Davies took part in a skydive and raised £336. • Rosaleen Moriarty-Simmonds sent in a donation of £179.85 raised from collection boxes. • Ruth Leeds completed a skydive and raised £250. • Rhydypenau Primary School sent in a donation of £485.06 from a nonuniform day. • Judith Miller forwarded a donation of £850 in respect of Owen’s Ride, including £400 collected by Owen’s scout group, 84th Cardiff, from a BBQ and other fundraising events going towards the bike ride. • Lloyds Bank Foundation sent a matched giving donation of £500 in respect of Alun Bevan taking part in Owen’s Ride and a quiz night. • Roger and Melanie Morris took part in Owen’s Ride and sent in donations of £5,882 in memory of their son. • Further donations amounting to £35,530.10 were received in respect of Owen’s Ride: the Hassey family sent in £1,295; Gillian Rhys-Jones sent in £890; Chris Vinestock sent in £565; Emma Davies sent in £327; Kate Galloway sent in £279.40; Paul Gray

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Issue 65 | September to December 2014


Our Fundraisers and Lewis Gray sent in £300; Lindsay George sent in £1,170; Phil Davies sent in £540.50; the Spence family sent in £1,980; Sara Gilmour sent in £932.24; Mark Rees sent in £1,005; Rhys Jones sent in £855; Ruth Leeds sent in £1,270; Richard Melhuish sent in £4,404; Eloise Littlejohns sent in £1,030; Gareth Ellis sent in £930; David Brown sent in £470; Lisa Davies sent in £1,582; Eve Tong sent in £305.40; Belinda Brown sent in £185; Sarah Simon sent in £1,380; Cheryl Gape sent in £195; Mark Gall sent in £1,505; Andrew Church sent in £270; John Rees sent in £351; Sharon Lockwood sent in £6,810; Dr Tracey James sent in £645.10; Stephen BourneSmith sent in £2,055; Tom Taylor sent in £454; Stuart Johnson sent in £889.46; Elizabeth Stevenson sent in £390; and James Pearn sent in £270.

In Memory of

David Moss

• Dawn Moss sent in a donation of £2,173.70. • Georgina Williams took part in a skydive and raised £356.

• Meg Dougall took part in the Bupa Glasgow 10K and raised £1,300. • Alison Edwards raised a total of £1,022.09 through taking part in the Bupa Great North Run 2014.

In Memory of

James Nicholas

• Kevin and Lesley Nicholas forwarded a donation of £521.40 raised by the Carmel College bike ride and £2,020 raised through a charity night, making a total raised of £2,541.40. • Rebecca Crellin completed a skydive and raised £1,713.

In Memory of

Claire Mounsey

Susan Mounsey raised £170 at a pub quiz night at the Holmans Sports Club.

In Memory of

Andrew Murch

• Gordon Murch forwarded a donation of £1,000: “Delighted to report that I accepted a cheque for £1,000 on behalf of CRY from Aberfeldy and District Rotary Club, proceeds from the recent Highland Perthshire Marathon.”

www.c-r-y.org.uk

• The Santander Foundation sent in a matched giving donation of £700 in respect of Rebecca Crellin’s skydive.

In Memory of

Jason Nixon

• Lara Clements took part in the Milton Keynes Marathon 2014 and raised £1,178.40. • Maxie Allen took part in a charity quiz night and raised £1,021.25.

In Memory of

Kathleen O’Brian

Eleanore McGoldrick took part in the Liverpool Half Marathon and raised £546.

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Our Fundraisers In Memory of

Chris O’Callaghan

Harry O’Callaghan took part in the London to Brighton Cycle 2014 and raised £515.

In Memory of

Kerry-Anne Offord

“On Sunday 20th July 2014, I hosted a family fun day in memory of Joe with the help of family and friends. The sun shined throughout the day, whilst there was a BBQ, bouncy castles, face painters and lots of fun activities for children of all ages to enjoy. There was also a special guest at the event, Ian Snodin, a football legend from Everton FC. Overall the day was a happy, successful day which ended with a balloon send off in memory of Joe Parkinson.”

Gary Horn took part in the Virgin Money London Marathon 2014 and sent in further donations, making a total raised of £3,375.28.

In Memory of

Simon Overy

Sally Croft took part in a tag triathlon at Blenheim Palace and raised £790.

In Memory of

Ben Palmer

Adam Palmer forwarded a donation of £170 from Mum, Dad, Nana, Kari and Amie.

In Memory of

Joe Parkinson

Holly Parkinson sent in total donations of £916 in respect of a family fun day in memory of her brother:

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In Memory of

Andrew Parr

• Ann Coles forwarded a cheque for £279 from Neil Bamber, raised by holding a fashion show with stalls, raffle and name the cuddly toy. • Ruth Lowe sent in a donation of £511 raised from a quiz night at Ingol Golf Club.

Issue 65 | September to December 2014


Our Fundraisers In Memory of

Kevin Paterson

by staff at Liberton Primary School taking part in an army assault course 10K walk.

• Damian Beard completed the London 2 Paris Bike Ride for his 40th birthday and raised £2,251.

• David Metcalfe took part in the Seven Hills of Edinburgh event and raised £1,160.

• Ron and Patricia Toft sent in a donation of £550 in lieu of gifts for their silver wedding anniversary.

• Kirsty MacMillan raised £250 from taking part in the Men’s Health Survival of the Fittest 10K.

• Rob Masterson raised £188.30 from taking part in the London 2 Paris Bike Ride.

In Memory of

Jennifer Pearce

• Martin Silvester took part in the Ironman Zurich 2014 event and raised £4,350. • Kathryn Paterson, Laura Bartley, Kathryn Cowen, Sheila Slater, Joseph Slater, Julie Braid, Terence Lewis, Rebecca Ramsden, Richard Ramsden, Jamie Gould, Mark Burgess and Iam Cranna took part in CRY Durham Riverside Walk 2014 and raised £388.

Sandra Pearce forwarded a donation of £2,450 from Soroptimists International, Birmingham, raised during her year as president.

In Memory of

Adam Pearmine

In Memory of

James Patrick Patterson

Kelvin Wilson sent in a donation of £2,310 in respect of a charity golf day.

In Memory of

Anna Collier took part in the Reading Triathlon and raised £517.40.

In Memory of

Alexander Peck

Kay Uttley sent in donations of £500 in lieu of floral tributes for her son.

David and Jenni Paul

• Craig Tumblety took part in the Maxifit Challenge and raised £299.52.

In Memory of

Benjamin Percival

• Gordon Paul sent in donations totalling £350; Mr and Mrs Stevenson sent £250 and Mr W Sime sent £100.

• Clare Hancock forwarded a donation of £250 from the Loose Schools’ Federation raised in respect of the retirement collection of the headteacher.

• David Metcalfe sent in a donation of £100.

• Stephen Flight raised £270 through taking part in the Prudential RideLondon-Surrey 100 2014.

• Andrew and Jo Crinson raised £1,690 through taking part in the Prudential RideLondon-Surrey 100 2014. • Robert Beck took part in the Edinburgh Marathon 2014 and raised £605. • Paul Ewing forwarded a donation of £2,699.74 raised www.c-r-y.org.uk

In Memory of

Nathan Perides

Lynsay Perides raised a total of £521 through taking part in the Bupa Great North Run 2014. 79


Our Fundraisers In Memory of

Christopher Phillips

Gemma Butterfield sent in a donation of £636.40.

In Memory of

Christopher and Steven Phillips

• Paul and Jane Phillips sent in donations of £180 in lieu of floral tributes for Steven. • The village of Weston organised a raffle and raised £279.30.

• Caroline Curran sent in a donation of £250.

In Memory of In Memory of

Duncan Phillips

Beth Phillips sent in a donation of £105 in memory of her husband.

Charlotte Pitstra

Sgt David Tuck took part in the Afghan Christmas Half Marathon and raised £510.

In Memory of

Gary Pope

In Memory of

• Ernst & Young sent in a matched donation of £506.69 in respect of Matthew Pope taking part in a half marathon.

James Phillips

• Robert Young sent in a donation of £100. • Shaun O’Brien forwarded a donation of £180 raised by James’s Kingston University friends.

• Lesley and Roger Pope sent in a donation of £209 in respect of a raffle held during a social evening.

• Cherry Phillips sent in a donation of £100. • Helen Roe forwarded a donation of £1,000 on behalf of Lifschutz Davidson Sandilands.

In Memory of

Richard Poulter

Clare Westlake raised £840 through taking part in the Bupa Great North Run 2014.

In Memory of

Sara Pilkington

• Bramhall School of Dancing held productions of Alice in Wonderland on April 12th and 13th and raised £1,250.

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In Memory of

Richard Poulter and Ellen Davies

Karen Bunning raised £800 through taking part in the Bupa Great North Run 2014.

Issue 65 | September to December 2014


Our Fundraisers In Memory of

In Memory of

Mark Pover

David Quinney

Julie Dransfield forwarded £176 comprising donations from Rick Leck, Stalybridge Celtic FC and Newton FC.

Mark Salthouse took part in the Way of the Roses event and raised £421.

In Memory of

In Memory of

Northwood College for Girls held a Halloween carnival and raised £1,036.11.

Bob and Joan Rawling sent in a donation of £220 in memory of their son.

Shannon Powell

In Memory of

In Memory of

Kath Davenport sent in a donation of £1,280 in respect of a charity basketball event.

Allison Read forwarded a donation of £1,620 raised at a Las Vegas night in Preston:

Graham Price

In Memory of

Matthew Price

Rhian Kingston completed a skydive and sent in a donation of £110.

In Memory of

Lucie Proctor

Mark Read sent in a donation of £244 raised through taking part in the London 2 Brighton 100km Challenge 2014.

In Memory of

Gemma Quew

Andrew Quew sent in a donation of £2,563.50 raised through a charity ice gala and a Spinnaker abseil.

www.c-r-y.org.uk

Darren Rawling

James Read

“My sister-in-law Collette Sailsbury (James’s partner) and myself organised a charity Las Vegas night in Preston in October 2014 and invited friends and family. We sold 200 tickets for the event which shows just how much everyone loved James, who was a very special person and touched so many people in his 33 years. We had an Elvis tribute act and also a Tom Jones tribute who is actually my own brother Dean Jones. My son Tyler (James’s only nephew) and James’s stepdaughter Naomi ran a raffle on the night which raised just over £500! Considering they are only 11 and 14 this, I think, is a great achievement and they should be very proud of themselves. The rest of the money was raised from ticket sales. We were overwhelmed with the support for the event from all James’s friends and family and we all had an amazing night of glitz and glamour.”

In Memory of

Nick Read

Robin Hambly took part in the Run for Nick Read event and sent in a donation of £543.

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Our Fundraisers In Memory of

Claire Reed

• James Duthie completed the B&Q Eastleigh 10K Road Race and raised £390.50. • Esso sent in a donation of £500 in relation to their site safety recognition scheme.

as two families had each lost a son due to cardiac failure while participating in sport. I approached both families to ask if they would be happy for me to run in aid of CRY and in memory of their children – Sam Wright and David Reid – and both families gave me their blessing. Three months of training later and I lined up for the Lichfield Half Marathon. I completed the course in a respectable time of 1 hour 58 minutes – slightly worse for wear!

• Joy Barnby at John Storer House Bridge Club sent in a donation of £310 in respect of CRY being chosen as their October charity. • Andrew Reed took part in a water wipeout event and raised £230.50. • Graham Hunter raised £428 in respect of a cake bake.

In Memory of

Alex Reid

• Rosalyn Barber held a coffee morning at Kiveton Park Primary Care Centre and raised £206.60. • Karon Fackerell took part in the New York Marathon and raised £465.50. • Heather Reid forwarded a donation of £2,920 raised at The Alex Reid Memorial Day, hosted by the Sheffield Indoor Acadamy at Beauchief Golf Club on August 22nd.

The run was rather daunting as most runners were from official clubs and very few charity runners had entered. However, this possibly singled me out (in my CRY vest) and I was spurred on with shouts of “Come on CRY runner!” from the spectators along the route.

In Memory of

At the end I felt proud to have helped CRY in some small way and can only say that you provide a wonderful service to families in need of help.”

David Reid and Sam Wright

Andy Newman completed the Lichfield Half Marathon and raised £675:

In Memory of

Debbie Rendle

“Eight months ago at the young age of 56 I ran my first ever half marathon with several work colleagues and helped to raise funds for Birmingham Children’s Hospital. It was a great day and kept me fit as well! I decided not to stop there and found a new challenge. Sadly, this was by way of my wife’s friends’ misfortune,

Sylvia Pezzack sent in donations totalling £673.50; raised through an awareness day and a donation from the Sea Salts & Sail Committee.

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Issue 65 | September to December 2014


Our Fundraisers In Memory of

Debbie Rendle and Ruth Williams

Sylvia Pezzack sent in donations totalling £1,030; £1,000 represents a legacy donation in memory of Ruth Williams and £30 is from the sale of Christmas cards.

In Memory of

Scott Rennie

Bill and Pat Graham sent in £100 and John Perkins and Jo Egleton sent £300, making a total raised of £400.

In Memory of

Stuart Ross

• Gillian Hunter held a coffee morning and raised £175. • David and Janet Ross sent in a donation of £500, raised by Colin Carson and his team, who completed the Belfast City Marathon. • David Ross sent in a donation of £1,820 raised at a barn dance organised by Lorna and Stanley Wilson. • David Ross sent in a donation of £1,620.39 raised in respect of a football match and a £100 donation from the Islandmagee Masonic Lodge, making a total raised of £1,720.39.

In Memory of

Nathan Rudy

“Team Nathan Rudy” took part in the CRY Heart of London Bridges Walk 2014 and sent in an additional £250, making a total raised of £973.

In Memory of

Amy Russell

• Siobhan Gall sent in total donations of £6,907.14 in respect of Siobhan, Poppy, Tom and Richard taking part in the Race to the Stones event. • CMS Cameron McKenna sent in a donation of £500 in respect of Siobhan Gall’s Race to the Stones event.

In Memory of

Jean Rowan

Fiona Tracey completed a bungee jump and sent in a total of £961 in memory of her sister.

www.c-r-y.org.uk

In Memory of

James Salisbury

Beth Dancer completed a London to Paris 24 hour challenge and raised £315.

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Our Fundraisers In Memory of

In Memory of

• Joyce Salmon sent in a donation of £175 in respect of a charity walk and a further donation of £350, making a total raised of £525.

Sally Shearer sent in a donation of £450 in respect of a ‘60s tribute night.

Craig Salmon

• Lindsey Horsnall sent in a donation of £1,600.

In Memory of

Andy Shearer

“We raised £900 in total, to be shared with the Dementia Resource Centre, Motherwell. The night was a roaring success with the ‘60s theme in full swing as you will see from the photos and it was another great achievement for our charity band Bannannyrammy (check us out on Facebook).” Drew Shearer (Andy’s dad).

Russell Salter

Charles Wilson, CEO of Booker, sent in a donation of £2,000.

In Memory of

Mike Scott

• Lady Lumley’s School held a nonuniform day and raised £260. • Marjorie Scott sent in a donation of £150 from Paul Robinson in lieu of presents for his 70th birthday. • Paul Bendelow took part in the Great North Swim and raised £865.

In Memory of

Wendy Scourfield

Gwenfair Mason sent in a donation of £430 on behalf of Whitland Bowling Club, who took part in a dragon boat race.

In Memory of

Jack Sheriff

Annella Hall sent in a donation of £305:

In Memory of

Keith and Emma Selby

Barbara Selby (wife and mother) sent in donations of £800 in lieu of floral tributes for her husband, including total donations of £95 from M Crutchlow, J Burrin, M Rivers, and M Payne.

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“My son Andrew Hall, now 23 years old, was a close friend of Jack’s. On 27th July I arranged a ‘hoe-down’ party to celebrate my 60th birthday and invited guests to donate to CRY in Jack’s memory. The party was a great success, with music from The Most Unexpected Dance Band, and everyone enjoyed themselves.”

Issue 65 | September to December 2014


Our Fundraisers In Memory of

Ben Simpson

• Rob and Penny Simpson sent in a donation of £350 raised at the Ben Simpson Bournemouth Open held at Romsey Golf Club. • Ian Ritchie sent in a donation of £1,000 and Talbot Underwriting sent in a matched giving donation of £1,000 in respect of the golf day.

In Memory of

Michelle Sinclair

In Memory of

Clare Kilburn and her fiancé Jonny raised £180 through taking part in the Bupa Great North Run 2014.

Charles Shoppee

Mary Waite sent in donations of £355 in lieu of floral tributes for the late Charles Shoppee.

In Memory of

Joshinder Singh Manku

In Memory of

Joshua Shotton

Philip Williams completed the Marmotte Cycling Sportive event in the French Alps and sent in total donations of £1,250 in memory of his friend.

In Memory of

Aashi Sinha

• Ravina Bhanot, Amrit Bhakar, Isabelle Bishop, Sarah Newell, Tannavi Sharma and Zoscha Partos took part in the British 10K Run 2014 and raised £2,045.23.

In Memory of

Gregg Shoults

Members of the Kent County Bowling Association raised £212.91 at The Church in Hope Street coffee morning stalls.

In Memory of

Madeline Siddall

Joan and Derek Maddison sent in donations of £150 in lieu of birthday gifts.

www.c-r-y.org.uk

Parminder Bansal raised £1,068 through taking part in the Prudential RideLondon-Surrey 100 2014.

• Kate Spencer Ellis sent in a donation of £1,288.11 in respect of a performance show at Forest School: “The money was raised through our annual ‘Fusion’ show. The event is a lively celebration of the diverse cultures that surround the school and features music, dance and drama. It is almost exclusively organised by 6th Form students. The pupils wanted to donate the money to CRY in memory of Aashi Sinha, a student from Forest who died suddenly in May 2013. For many years Aashi had been an important part of the Fusion team, as a dancer and friend.” • “Team Aashi”; Isabelle Bishop, Ravina Bhanot and Sarah Newell took part in the CRY Heart of London Bridges Walk 2014 and raised £1,023.48.

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Our Fundraisers In Memory of

In Memory of

Robert Daniel Smith

David Smiley

• Lucy Hopkisson completed the Cranbrook Sprint Triathlon and raised £730. • Jennifer Smiley sent in a donation of £770 raised through a weekly quiz night.

In Memory of

Alex Smith

Jenny and Geoff Smith took part in the CRY Durham Riverside Walk 2014 and raised £1,445.

Linda Smith, Robert Smith, Sherrie Smith, Elain Spence, Jean Spence, Julie Snowball, Jordan Thompson, Shannon Thompson, Sophie Clark, Susan Clark, Janice Gash, Mahmoud Alattar, Lisa Shanks, Lisa Benton, Paula Mollon, Margaret Donnelly, Marilyn Robinson, Helen Allen, Kelly Collier, Kerry Lister, Lyn Hunter, Terri Wright, Joanne Mavin, Margaret Layton, Jackie Gales, Julie Thompson, Alison Vest, Helen Bowes, Lauren Bowes, Joanne Brown, Sophie Brown, Susan Earnshaw, Alison Batty-Kay, Sam Cadman, Donna Daggett, Valerie Guy-Brennan, Ann Atkinson, Debbie Humberstone, Alan Peacock, Angela Wood, Catherine Wood, Andrew Mayo, Emma Willis, Susan Shanks, Suzanne Manners and Dorothy Foy, took part in the CRY Durham Riverside Walk 2014 and raised £2,251.50.

In Memory of

Christiaan Smith

• Maxine Kavanagh took part in the Admiral Swansea Bay 10K and raised a total of £1,496.50. • Maxine Kavanagh forwarded a donation of £400 from Vinci.

Carlo Spiotta

• Teresa Nardo-Jackson took part in the Bupa London 10,000 2014 and raised £613. • Teresa Nardo-Jackson took part in the Bupa Great Manchester Run 2014 and raised £520.

In Memory of

In Memory of

Darren Smith

Ann Fisher forwarded total donations of £660: £165 from a collection box at Hunter Paul Butcher & Delicatessen; £50 from a collection box at Campsie Dining Room; £100 raised from a car boot sale; £75 from the collection box at the Cooperative, Lennoxtown, and £270 raised from the sale of a signed Celtic football top.

In Memory of

Lee Smith

Gareth Robinson took part in a Tough Mudder challenge and raised £4,652.

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In Memory of

Rupert Spurling

Barbara Spurling sent in a donation for £250 raised during an Ice Bucket Challenge.

In Memory of

Claire Squires

Students in Wistan House at Guthlaxton College donated £760 from a variety of events throughout 2013.

In Memory of

Lee Stables

Sharon Stables sent in a donation of £104.

Issue 65 | September to December 2014


Our Fundraisers In Memory of

David Staff

Tim Walker at BC Workspace donated £100 in respect of the David Staff Memorial Fell Race.

In Memory of

James Steen

Roisin Sloan completed the Belfast Marathon team relay event and raised £470.72.

In Memory of In Memory of

Philip Standing

Sue Fisher sent in a donation of £3,500.

Blaine Steinberg

Hollie Jones completed the Liverpool Half Marathon and raised £180.46.

In Memory of

Andrew Stevens

In Memory of

Gill Kennerley sent in donations totalling £200, including £150 from Mrs J Farrell and a £10 donation from Mrs N Andrews.

Hannah Stanton

• Graham Stanton sent in a donation of £330 raised in respect of a golf day in memory of his daughter.

In Memory of

Gary Stewart

• Emma Blackwell sent in a donation of £1,630 from Ashavan Beauty Salon and Deja Vu Hairdressers in respect of a fundraiser and wristband sales.

In Memory of

Harry Starrett

St. Luke’s Parish Church organised a tractor run event and raised £460.

• Richard Linton raised £1,115 from taking part in the Copenhagen Marathon. • Scott Cruickshank took part in a 14 day cycle tour covering 1,300 miles in Scotland and raised £981.11.

In Memory of

Daisy Stonach

In Memory of

Ben Steele

Clair Foster raised a total of £381 through running the Windsor Half Marathon 2014.

• Natasha Clarke sent in a donation of £100. • Hillary Steele sent in a donation of £500 in respect of the London to Paris Cycle Ride.

In Memory of

• CVC Capital Partners sent in a matched donation of £1,877 in respect of the London to Paris Cycle Ride.

Rebecca Cresswell completed the Northamptonshire Run and raised £695.

www.c-r-y.org.uk

David Styles

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Our Fundraisers In Memory of

Debbie Suau-Marcus

Claire Suau-Marcus took part in the Peru Trek and raised £2,730.

In Memory of

Patrick Swinson

• Gillian and Robert Swinson have forwarded donations totalling £979: £759 was raised by Weymouth Marina (Dean & Reddyhoff) at their annual berth holders summer party; £100 was donated by Mrs Waring in recognition of the Round the Island sailing race; and £120 was donated by the crew on their boat. • Gemma Francis sent in a donation of £100 raised at a cake sale at Alderley Edge School for Girls in memory of her cousin.

In Memory of

Paul Sykes

Rob Hazell forwarded at donation of £263.18 raised from a collection tin at Sainsbury’s, West Park Farm.

In Memory of

Hannah Taylor

Charles Bull sent in donations totalling £522.75: a bric-a-brac stall and raffle organised by Hannah’s mum, nanna and friends at the Harwich Sea Festival on July 27th raised £377.24; a bric-a-brac stall organised by Mr and Mrs Reedman outside their florists raised £88.39; a collection tin at Homecraft DIY raised £34.92 and proceeds from the sale of hanging baskets raised £22.20.

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In Memory of

Zoe Teale

Peter Teale raised £578.83 through taking part in the Bupa Great North Run 2014.

In Memory of

Dale Tennent-Butler

• Angela Tennent-Butler forwarded a donation of £600 from Shendish Golf Club and the Hilderyard family in respect of a Shendish Manor golf tournament. • Angela Tennent-Butler sent in a donation of £1,465 in respect of a Kings Langley charity cricket day and £760 raised by the Kings Langley Servicemen’s Club’s disco and raffle, making a total raised of £2,225. • Angela Tennent-Butler forwarded total donations of £200; Allcover Insurance donated £100 and Planet P&H UK donated £100 in respect of a Shendish Manor golf tournament.

In Memory of

Jack Thomas

• Jan and David Norris organised the London Open Taekwondo event and sent in a donation of £2,340. • June Thomas forwarded total donations of £2,275.40: Mr Lee Humphries’ charity bike ride raised £423; Derek Eatwell’s charity night raised £526; a Halloween party at Newbridge Rugby Club raised £525; collection boxes at Asda, Blackwood, raised £141.40 and the Linde Charity and Welfare Fund raised £660.

In Memory of

Oliver Thompson

• Graham and Cheryle Thompson sent in a donation of £100. • David McGoldrick sent in a donation of £100.

Issue 65 | September to December 2014


Our Fundraisers In Memory of

In Memory of

Mark McFern sent in a donation of £953.30 raised by the Stranraer Golf Club.

Delphi Diesel sent in a matched donation of £250 in respect of Craig Thomas’s skydive.

William Thomson

Ty Townsley

In Memory of

Ben Thorley

Dr Andrew Thorley sent in donations of £1,032 in lieu of floral tributes for the late Ben Thorley.

In Memory of

Richard Tomkins

In Memory of

Jayden Tullett

• Simon Hand took part in the Evesham Ultra Marathon and raised £585. • Dawn Tullett took part in the Summer Wolf Run and raised £1,513.

Team Five; Hiral Billimoria, Amy Moore, Emily Green, Serena Di Rienzo, Katie Mullen and Becky Tomkins, raised £635 through their social action project with the National Citizen Service programme: “Team Five held several fundraising events including a mud run, car wash and coffee morning. As 16 to 17-year-olds ourselves, the charity has a special place in our hearts and we’re so happy to pass on this amount of money. CRY’s work across the country and closer to home is incredibly important and to be able to contribute to its continuation is honestly wonderful. We would like to thank Valassis, Rock Solid Race Milton Keynes and Expresso’s Coffee Bar & Lounge in Raunds for giving us the chance to raise the money. Finally a massive thank you to the CRY team for your support and guidance throughout our fundraising journey.”

In Memory of

Hannah Turberville

Brian Turberville forwarded £100 raised as the first proceeds of a ball to be held in December.

In Memory of

Sian Turnbull

Joyce Turnbull sent in a donation of £150 in memory of her daughter.

In Memory of

Lee Turner

In Memory of

Robert Carr took part in the Bupa Great North Run and sent in total donations of £650.

• Josh Hughes sent in a donation of £120 raised by staff at Ysgol Morgan Llwyd School.

In Memory of

• James Griffiths took part in the Virgin Money London Marathon 2014 and sent in a further £100, making a total raised of £3,777.60.

Mark Vernon took part in the Belfast Marathon and raised £110.

Scott Torrens

www.c-r-y.org.uk

Bronagh Vernon

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Our Fundraisers In Memory of

Chloe Waddell

• Fiona Waddell sent in a donation of £700. • Maisie Eakin raised £440 through taking part in the Bupa Great North Run 2014.

In Memory of

Thomas Wall

• Robin Shepheard took part in Grand Union Canal Race and raised £343. • Christopher Wall took part in the Paris to Lyon Cycle Ride and raised £2,773 and sent in a further donation of £250, making a total raised of £3,023.

In Memory of

Chris Walsh

Rosemary Lugg took part in the Bupa Great South Run 2014 and raised £190.

In Memory of

• Elaine Ward sent in total donations of £270: Elaine’s godson, who lives in Tokyo and recently got married, donated £250; and £20 was received from a lady at the local church.

In Memory of

Alex Watley

• Lucy Chisholm took part in the Red Heart Relay and raised £100. • Joe Riley sent in a donation of £1,760.36 in respect of completing five marathons in five days. “Joe Riley, an English teacher from Hampshire, set himself this most formidable task to raise awareness and funds for CRY. During the Easter holidays – whilst most teachers took a welcome break from the classroom – Joe ran five successive marathons, in as many days.

In Memory of

Joe’s daily route took him through each of the five city gates of Winchester. He started and finished from his five favourite pubs: day one, The St James’s Tavern; day two, The Black Boy; day three, The Eclipse; day four, The Wykeham Arms; day five, The Bishop on the Bridge.

• Elaine Ward sent in a donation of £480 raised from a bucket collection at the Music in the Gardens event in Sheffield and a further donation of £2,000 from the event, making a total raised of £2,480.

Each day Joe could be seen running through the Hampshire countryside with his dad accompanying him on his bike carrying the essentials and providing support and encouragement. Occasionally he met with a small band of supporters and onlookers! The fifth marathon on Easter Sunday started in Petersfield and ended up at The

David James Ward

Gary Thompson raised a total of £945 through taking part in the Bupa Great North Run 2014.

Neil Ward

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Issue 65 | September to December 2014


Our Fundraisers Bishop on the Bridge. Easter Sunday was wet, it poured. Joe was running in memory of Alex Watley and the plan was to run through Alresford and meet up with Alex’s family. He did, they were all there taking shelter in the bus stop! It may have been damp but their cheers still raised the roof. Amazingly, several people joined Joe and his dad for the last few miles and there was a very warm and splendid celebration at the Bishop on the Bridge. Joe aims to continue to raise funds and awareness about CRY. He commented that CRY was a charity that he was proud to put his legs through hell for!”

and cream tea; £629 from the Jokers nightclub event, to celebrate what would have been Lily’s 18th birthday; £125 from the Stowfiesta stall at a music festival; £145 from a cake stall and a £137 donation on a screening day and with a raffle. “We held another sing-along film night, this time choosing ‘Grease’. The Regal cinema has continued to give us great support.” Melanie Webster.

• Rachael Batho took part in the Southdown Relay and raised £236. • Martin Terrill took part in the Alex Watley Charity Golf Day and raised £716. • Matthew Barrett took part in the Clarendon Marathon and raised £350.21. • Lee Grant completed the Cycle to Sweden event with Tom, Andrew, Craig and AJ and raised £921.03. Stowfiesta CRY stall

In Memory of

Jason Webster

Rebecca Webster took part in the Robin Hood Half Marathon and raised £558.

“Molls and Dolls Boutique worked with us to put on a sweet pea fashion show and cream tea which was a wonderful event enjoyed by all who attended.” Melanie Webster.

In Memory of

Lily Webster

• Claire Thompson completed the 10K Village Fun Run and raised £380. • Melanie Webster forwarded donations totalling £5,400, comprising: £544 raised from Christmas stalls and family Christmas money; £1,220 from a football event; £1,400 from a film night; £40 donated by friends; £1,160 from a fashion show

www.c-r-y.org.uk

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Our Fundraisers In Memory of

Richard Whitehead

• Pam and John Whitehead (Richard’s parents) and Jo Bradley (Richard’s sister) sent in a donation of £2,250 raised at a black tie dinner dance evening, making a total raised of £2,450: “We organised the above evening to mark 10 years since losing our beloved Richard. The evening was a huge success and over 100 people attended, we had a raffle and an auction and we were truly astounded at everyone’s generosity.”

Lily’s 18th birthday at Jokers

In Memory of

George Weller

William Weller sent in a donation of £133.50 in respect of a cake and coffee afternoon in memory of his son.

In Memory of

Sally Wells

• Michael Smith sent in a donation of £500 on behalf of the Trustees of the Kirk Nokes Memorial Fund raised at a rugby match. • “Team Sally Wells” took part in the CRY Heart of London Bridges Walk 2014 and sent in an additional £596.52, making a total raised of £2,003.52.

• Pam and John Whitehead sent in £200 in respect of a family fun day: “What a fantastic day; lots of laughs from Dippy the clown, great disco dancing and party games, followed by horseracing, delicious BBQ food, Spam’s quiz and even an Ice Bucket Challenge! We are so grateful to all those that helped to organise the event and to those that came along and supported it.”

In Memory of

Emlyn Wibberley

James Wibberley took part in the Thames Path Challenge and raised £425.

In Memory of In Memory of

David Wesson

Diane Wesson sent in donations of £221 in lieu of floral tributes for her late mother in memory of David.

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Amy Williams

Neil Mathews took part in the Truro Half Marathon and raised £100.

Issue 65 | September to December 2014


Our Fundraisers In Memory of

David Williams

Sue Williams sent in a donation of £2,000 from the Ashford Cardiac Support Group.

In Memory of

Angela Wilson

Kate Quinn sent in a donation of £100.

In Memory of

Craig Wilson

In Memory of

Joe Williams

• Keith Lawrence sent in a donation of £135.

Tony Wheatman raised £548 through taking part in the Bupa Great North Run 2014.

• Nationwide Building Society sent a matched giving donation of £285.14 in respect of a raffle.

In Memory of

James Wilson

• Peter Scott sent in a donation of £950. • Tracey Croucher forwarded total donations of £8,000 from Mrs J Wright, a customer of Nationwide Building Society in Feltham. • Laleham Church Playgroup held a sponsored bike and scooter ride as well as cake sales and raised £1,000.

Paula Thomson sent in a donation of £240 raised by Bethany, who completed the Junior Great North Run in memory of her uncle.

In Memory of

In Memory of

Kay Wilson

Peter Williams

Anna Dennis took part in a skydive and raised £814.

Sonya Edwards took part in an Ultra Challenge Marathon and raised £385.

In Memory of

Sarah Williamson

In Memory of

Kevin Wilson

Kathryn Williamson took part in the Bupa Great South Run 2014 and raised £205 in memory of her cousin.

Kristianne Jones took part in the Chester Half Marathon 2014 and raised £621.

In Memory of

David Kenneth Wood

Becky Beesley sent in donations of £365.82 in lieu of floral tributes for her partner.

www.c-r-y.org.uk

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Our Fundraisers In Memory of

Jake Wood

• Sami (Jake’s cousin) and friends raised £845 climbing the highest Brecon Beacons hill. “On 28 June 2014, Sami Majid-Wood (aged 6), Emily Horleston (aged 6) and George Horleston (aged 5) walked up Pen-y-Fan in memory of Sami’s beloved cousin Jake, who died unexpectedly when he was 12. The weather was perfect on the way up, with just the right amount of cloud cover, and we got caught up in a thundering downpour on the way down which was quite fun. The views were wonderful and the children made a memorial to Jake out of stones at the top. A beautiful, sad day we will never forget.” Kate Wood.

School, organised a football match again Silverdale Athletic under 18s. Liam would have been celebrating his 16th birthday on 6th August 2014.”

In Memory of

Damien Woods

Chris Kyriacou raised £565 by taking part in a skydive.

In Memory of

Julian Wort

• Shirley Wort sent in total donations of £144.60; Hanover Gardens residents raised £103 and the Frome Rugby Club collection box raised £41.60. • Woodlanders Music Hall sent in a donation of £200.

In Memory of

Louise Worth

Ami Jarvis took part in the Trek Up Kilimanjaro and raised £1,700.

In Memory of

Sam Wright

• Anna Horleston took part in the E&G Mountain Climb and raised £260.

In Memory of

Liam Wood and Nathan Butler

• Jessica Maloney raised £532.85 by taking part in the Ashbourne Triathlon. • Dani West sent in a donation of £500 raised at a family day held at Noel-Baker School.

Angela Butler sent in a donation of £150:

In Memory of

“A cheque for £150 for the Nathan Butler Memorial Fund has been donated in memory of Liam Wood, who passed away at the age of 13 whilst playing in a football match. Friends of Liam, from St John Fisher

Friends and family raised £130 by completing the Ice Bucket Challenge.

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Daniel Young

Issue 65 | September to December 2014


General Fundraising • The 62 Ladies Luncheon Club hold quarterly lunches with friends and raised £308 from raffles and sales of work. • Accenture sent in a matched giving donation of £100. • Stephen Adams took part in the Fan Dance Race and raised £552.79. • The Alex and William de Winton Trust sent in a donation of £500. • Guy and Adelle Allen held a Neighbourhood Watch summer party and raised £150.

• Sarah Barker sent in a donation of £330 raised by holding a bring and buy cake sale after her daughter’s christening, matched by United Utilities, making a total raised of £660. • Neil Davies at Barnett Waddingham sent in a donation of £500 in respect of an eight man team that participated in the Newton sports day. • Mark Bartram sent in a donation of £155 raised from a sponsored run. • The Berkeley Partnership sent in a donation of £1,000 in respect of the Tough Mudder Pursuit.

• Jaime Allen took part in the Hackney Half Marathon and raised £401.61.

• Owain Bevan took part in the Virgin Money London Marathon 2014 and sent in further donations, making a total raised of £1,536.20.

• Dylan Amey took part in Dylan’s Bike Ride ‘09 and raised £335.

• Birchwood High School sent in a donation of £1,000.

• Alison Anderson took part in the Bupa Great Women’s 10K Glasgow 2014 and raised £262.09.

• Blackfen School for Girls sent in donation of £1,192.29.

• Lisa Appleby sent in a donation of £250.

• Christine Bloomfield sent in a donation of £117 raised at a darts tounament.

• Geoffrey Armitage sent in a donation of £100. • The Athelstan Lodge No. 4771 sent in a donation of £100. • Joseph Atkins sent in £2,244 raised in respect of taking part in a Paris to Barcelona event. • Laura Baird took part in the Bupa Great Women’s 10K Glasgow 2014 and raised £170. • Laura Balcombe raised £750 through taking part in the Prudential RideLondon-Surrey 100 2014. • Rebecca Ball took part in a London to Paris cycle and raised £464.75. • Anne Hutchinson sent in a donation of £107 in respect of the collection box at Banbridge Leisure Centre. • Banstead Community Junior School raised £215 by holding cake sales.

www.c-r-y.org.uk

• Laura Bloor took part in the Tour of Merseyside and raised £145. • Angela Bradshaw took part in the No Ego 10K and raised £724. • Lynn Brennan sent in total donations of £433.85 raised at a bag pack. • Kim Brewer took part in the London 2 Brighton Challenge 2014 and raised £395. • Andrew Brooks took part in the Ythan Challenge and raised £145. • Aquarius Lodge sent in a donation of £257 from the Freemasons’ Relief Chest Scheme. • Megan Buncombe held a charity music event and sent in a donation of £233.33. • Lisa Busby took part in climbing Kilimanjaro and raised £100.

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General Fundraising • The Business Acadamy Bexley sent in a donation of £102 collected by three students doing a sponsored trampoline bounce. • C Brewer & Sons sent in a donation of £200. • Christine Callaghan sent in a donation of £150 raised by members of The Royal Antediluvian Order of Buffaloes. • Lili Caldwell, Capita, sent in a donation of £194.25 from a recent dress down day: “The Capita West Sussex Partnership has a number of offices around the county, namely; Bognor Regis, Chichester, Horsham, Worthing and Crawley. We encourage our staff to get involved in charitable activity and hold monthly dress down days for all staff based in these offices – on these days staff are asked to contribute to local charities by paying a small fee to dress casually. Each month staff nominate a charity of their choice and the money raised is then handed over to the relevant charity. We are very pleased that our staff selected such a worthy charity to support and we hope that in some small way we have helped a family.” • Alex Chalker took part in the PruHealth Triathlon and raised £188.45. • Mark Childs sent in a donation of £170 raised during club night “Shenanigans” on October 18th: “Shenanigans is a club night based around diversity. We pride ourselves on playing the widest range of music possible from the alternative subculture, and we do it with a whole lot of enthusiasm.”

• Church & Dwight UK were visited at their offices in Folkestone by CRY Patron Pixie Lott when she put on a performance for 300 staff in respect of her role as brand ambassador for Batiste Dry Shampoo. Staff donations at the event raised £196.54. “Here at Church & Dwight UK we believe that we should engage with the local community to build relationships and one way that we do this is by supporting local charities and events where we can. Other ways that we support charities was recently shown by the monies raised for CRY, Pixie Lott’s chosen charity, which offers help, support and counselling to affected families. We agreed that any monies donated voluntarily for copies of photographs taken with Pixie would be sent to the charity. I am pleased to report that £196.54 was raised. Thank you everyone who donated.” Elizabeth Money, HR Director and European Organisation Development Director, Church & Dwight UK. • Gill Clark completed a swimathon and raised £411.50. • Neil Courtney and Michèle Brock gave a violin and piano recital and raised £607: “After many years spent organising instrumental and extra-curricular music making in schools in islands either side of the English Channel, ex-Isle of Wight Symphony Orchestra leader Neil Courtney, former Head of the Isle of Wight Music Service and more recently Head of Jersey Music Service, celebrated his recent retirement back to the Isle of Wight in a recital on Saturday 27th September at the Memorial Hall, Freshwater, with island pianist Michèle Brock, well known to local audiences through her work with both young musicians and the wider island community. The concert was enjoyed by a large and appreciative audience and included a wide variety of accessible 19th and 20th century violin and piano repertoire, from Kreisler, Brahms and Dvorak to Shostakovich, Bartok

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Issue 65 | September to December 2014


General Fundraising and Stravinsky in lighter mood, and raised £607 for Cardiac Risk in the Young.”

• Morag Donald took part in the Bupa Great Women’s 10K Glasgow 2014 and raised £550. • Alison Drennan sent in a donation of £100. • Lucy Dunn at Rotork sent in a donation of £160 raised from holding a dress down day at their offices in Bath. • Heather Edwards sent in a donation of £111.14. • Claire Jackson, Edwards Lifesciences, sent in a donation of £300. • Peter Wylie at Equiniti Intelligent Solutions sent in a donation of £260 raised from holding a “pay day breakfast”.

• Abbie and Gareth Cowie took part in the CRY Durham Riverside Walk 2014 after their son was diagnosed at a CRY screening and sucessfully treated, raising £150. • Helen Cretten took part in the 2014 Tough Mudder challenge and raised £5,184.88. • Simon Crouch sent in a donation of £100. • Reverend Brian Cunningham, Oundle School, sent in a donation of £170 raised during collections in the school chapel. • Kieron Curtis took part in the York 10K 2014 and raised £145. • Bob Davey at the Rotary Club of Brentwood a Becket has donated £100. • Paul Davies at Tredegear Cons Club sent in a donation of £534 raised from a charity evening held on October 8th. • Lisa Dean took part in the Bristol 10K 2014 and raised £130. • Andrew Dennett sent in a donation of £150 in respect of taking part in the Three Peaks Challenge. • Martyn Dixon took part in the Great North Swim 2014 and raised £217.78.

www.c-r-y.org.uk

“This event is held on the last Friday of every month (i.e. pay day) in support of local and national charities as chosen by staff; on this occasion, Michael Geary. The event is very popular with about 30–50 people having breakfast on the day.” • Colin Evans sent in a donation of £2,500 for the Tim Butt myheart Fund in respect of sponsorship donated by RoboForm UK. • Catherine Levett sent in a donation of £376.89 collected by the staff of Express Finance. • Andrew Ferris took part in a cycling challenge of over 900 miles and raised £927.50. • Max Flemming, Chelsea Keen and Katie Anderson raised £256 from a tandem skydive. • Samantha Forsey sent in £185.80 raised through various events including a dress down day, cream teas and sponge the manager event. • Mandy Friar took part in the Glasgow 10K and raised £135. • Paul Gamble took part in a running challenge and raised £245. • John Geddie took part in the Edinburgh Marathon and raised £3,491.47.

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General Fundraising • Thomas Gomulko took part in the Tough Mudder and raised £610. • Nichola Goss sent in £340 from a sponsored walk. • Amanda Glen took part in the Tough Mudder and raised £280. • HSBC sent a matched giving donation of £1,500 in respect of Joshua Graham, Lance McAllister and Gemma Thomas’s fundraising efforts. • Lee Grant sent in £1,652.16 raised from taking part in a cycle event in Sweden. • Jill Griffin sent in a donation of £300 in lieu of gifts to celebrate her 60th birthday. • Peter Guy sent in a donation of £230 collected by his football team (Bishops Stortford under-14s) during an end of season event. • Graham Halliday sent in a donation of £4,265 in respect of sponsorship from family and friends. • CRY Patron Simon Halliday sent in a donation of £500 in respect of book royalty payments.

The walking through the night felt long and at times a little scary but the breaking of dawn and sunrise were breathtaking and have given us a renewed spring in our step! The last 20km were very hard, the muscles screaming and blisters all bandaged up... but being so very near the end there was NO way we were going to give up! The finish... emotional and soooo happy! Had a marathon sleep, 16 hours, and stumbled around the next day but it was just an amazing experience!”

• Dominic Hanly raised £842.50 by taking part in a three day 240 mile cycle across Ireland. • Abi Harding took part in the Three Peak Trekking event and raised £135. • Lottie Harding took part in the London to Brighton Cycle and raised £620.69. • Simon Hartshorne and Richard Senior sent total donations of £800 in respect of the Baby Deltic train rebuilding project and Rolls-Royce DGS. • Marina Havinden took part in the 2014 Isle of Wight Challenge and raised £200. “Yay I did it! It did take 29.26 hours and I have three blisters but it was amazing! We set off at 8:45-ish and felt very excited! The weather was perfect sunshine but not too hot and the views amazing! Action Challenge’s organisation, the route markings, kind and helpful volunteers, food and first aid were amazing as well, we could not fault them!

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• Dale Milliken, Sparkler, sent in a donation of £200 on behalf of Mark Hearn who recently took part in a research initiative. • Janice Heggie raised a total of £430 through taking part in the Bupa Great North Run 2014. • Mike Henry took part in a London to Brighton offroad race and raised £435.

Issue 65 | September to December 2014


General Fundraising • Craig Hicks presented a cheque for £1,075 to CRY’s Deputy Chief Executive Steve Cox raised from Surrey Council FA’s annual charity golf day.

• Sgt Jackson of 39th Regimental Royal Artillery sent in a donation of £1,600 raised at a charity golf day in August.

• Simon Hiley completed a Devon coast to coast event with his friend Paul and raised £1,330. • Mike Hill completed a John O’Groats to Land’s End challenge and raised £2,845. • John Hobson sent in a donation of £950. • Christina Holland took part in Race for Life and raised £150.

• Matt Jackson sent in a donation of £430 raised at the Total Warrior event in August.

• Nigel Holliday took part in the Edinburgh to Durham Cathedral cycle trip and raised £100.

• Charles Jacobs raised £750 through taking part in the Prudential RideLondon-Surrey 100 2014.

• John Homes sent in a donation of £100 raised in respect of the Annapurna Circuit.

• Samantha Jones took part in the No Ego 10K and raised £232.

• Emily Barrow at Howdens Joinery sent in a donation of £1,000 in honour of her work colleague Victoria Dillon, who suffered a cardiac arrest earlier this year. The money was raised by holding a number of fundraising days including Howdens Sports Day.

• Mr and Mrs Kelsey sent in a donation of £100.

• Catherine Hudspith took part in the No Ego 10K and raised £165.

• Langley Park School for Girls sent in a donation of £1,000. • Miss V Lazaro sent in a donation of £100. • Lisa Leadbetter sent in a donation of £275.

• Debbie Humpherson sent in a donation of £525 on behalf on Marcade Electrical Services.

• Kevin Lee took part in the Tough Mudder Yorkshire 2014 challenge and raised £785.23.

• Gary lles sent in a donation of £315 raised during the Cyder Cup golf day.

• myheart member Laura Lees took part in three events and raised £377.25:

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General Fundraising “Earlier this year I decided to do a bit of a fundraiser, but wanted it to be something a bit different. I chose two charities as I worked for Deafblind UK and was involved with the important work they do for people with a combined sensory loss, and CRY helped me when I was diagnosed with complete heart block caused by cardiac sarcoidosis, meaning I had to have an ICD (pacemaker) fitted at the age of 30. I thought it would be a really good idea to help highlight to people the difficulties deafblind people have during their everyday lives so I decided to run the Caerphilly 10K wearing specs that replicate pinhole vision and also wearing ear defenders to replicate being hard of hearing. The race day came and all went without a hitch. I didn’t fall or trip anyone over which was my main aim. The next challenge was going to be an 11.2 mile assault course, Tough Mudder in Cirencester. This wasn’t a walk in the park assault course; it incorporated a lot of mud, tanks of ice, carrying each other and people hauling you up over two metre walls. Pure grit and determination got me through this one! It was truly knackering and despite training I was stiff for days afterwards.

• Elizabeth Leigh took part in a triathlon and raised £333.75. • Peggy Leith celebrated her 90th birthday and sent donations of £425 in lieu of presents. • Deborah Liddle sent in a donation of £100 in respect of Tettenhall College voting for their teachers to take part in the Ice Bucket Challenge. “A member of the pupil-based charity committee at Tettenhall College suggested raising funds for CRY and an Ice Bucket Challenge involving teachers seemed the best idea!

But a week later I was to do the final part of the challenge. My CRY vest went on for the, new this year, Severn Bridge Half Marathon. I’d not done one before so this was a good challenge in itself. The route was great with us running twice across the old Severn crossing. The training for this was long and hard and the race was very tiring. But I did it and I feel proud to have helped these two charities carry on the great work they do.”

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Pupils were asked to pay 50p to vote for the teacher who should face the Ice Bucket Challenge. The pupils enjoyed voting for their teachers and the challenge took place after a fun afternoon of house sports competitions. The teachers, including the headmaster, all lined up to face their fate and all successfully completed the challenge. Mr Williams, Mr

Issue 65 | September to December 2014


General Fundraising • Louise Lovely sent in a matched donation of £125 from her employer, Thrings, in respect of the half marathon she completed in September. • Chloe Lynch took part in a five mile fun run and raised £438. • John Mair sent in a donation of £250. • Rupert Maitland donated £2,025 raised from taking part in the Land’s End to London cycle route in memory of his son’s friend. • Hannah Matthews sent in a donation of £175 in respect of the Taunton Half Marathon. Bullough, Mr Bullock, Mr Higgs and Mr Leighton – we salute you! In total £100 was collected to CRY and we hope to continue fundraising throughout the coming school year.”

• Ali McCabe took part in The Dash event and raised £810. • Bex McGinty donated £220 raised through taking part in the Bupa Great Manchester Run 2014. • Mead Vale Community Primary School sent in a donation of £100 raised during the World Cup Day in the summer term. • The Miller Group sent in a donation of £100. • Sasha Molloy sent in a donation of £100. • Mrs Mondelli-Son sent in a donation of £100 in respect of Paul’s photos.

• Stuart Liddle raised £625 through taking part in the Prudential RideLondon-Surrey 100 2014. • Claire Lloyd took part in a Wirral coastal walk and raised £460. • David Lloyd sent in a donation of £275 raised from taking part in the Tough Mudder London West event.

• Louise Mortimer sent in a donation of £554. • Helen Murawska sent in a donation of £193 raised during a charity bike ride from London to Paris. • Nationwide Building Society, Swindon, sent in a matched giving donation of £100. • Newton Investment Management held a fundraising night and raised £500.

• Lloyds Bank Foundation sent in a matched giving donation of £270 in respect of David Swan’s challenge to visit all 270 underground stations in 24 hours.

• Eleanor Niblock took part in the Canterbury Triathlon and raised £670.

• CRY Patron Pixie Lott sent in a donation of £185 raised in respect of pub gigs.

• Wendy Noble raised £411 through taking part in the Bupa Great North Run 2014.

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• Alison Nix took part in the Great North Swim and raised £199.

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General Fundraising • Clare O’Neill donated £105 as a thank you for screening her two sons at a CRY clinic. • Lydia Orange, Chandni Patel and Anneke Southern held a cake sale and raised £534.30.

Through the castle drawbridge then a nice jaunt through the park and out through Carlisle towards the hills – it was a joy to get underway.”

• One Stop Stores in Cockermouth sent in a donation of £400 in respect of a sposored walk and raffle. • Hannah Palmer took part in the Edinburgh Marathon Festival 2014 and raised £727. • Dr and Mrs Parham sent in a donation of £200. • Ella and Donna Parkinson sent in a donation of £100 raised through a skydive. • Ian Paterson completed the Firefighters Three Peak Challenge and raised £181.23. • Paul Pickering sent in a donation of £100. • Jo Pitkin raised a total of £1,055 through taking part in the Sure Run to the Beat 10K 2014. • Daniel Pringle took part in the Home to Rome challenge and raised £135.

• Adam Robson raised £115 through taking part in the Bupa Great North Run 2014. • Simon Roome and Idwal Williams took part in the Milton Keynes Marathon and raised £610.

• Matt Pryor took part in a cycling event from Crystal Palace to The Stag’s Head Inn over three days and raised £1,840 in memory of his fiancée’s brother. • Gareth Pugh took part in the Three Peaks Challenge event and raised £4,567.34. • PWC Foundation sent in a donation of £250. • Liona Riding sent in a donation of £269.10 raised by completing a Hadrian’s Wall ultra marathon; 69 miles over two days: “I had the CRY vest ready for day one which was 32 miles, and a vest I had made for day two which was 37 miles, but the weather was that hot I decided I had to run both days with the T-shirt. Saturday morning we arrive at the start of the ultra marathon, which is at Carlisle Castle. The rain dance I did the day before didn’t work as by 8am it was so hot.

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• Marijke Root took part in the London 2 Brighton Challenge 2014 and raised £445. • Karen Rose at the Insurance Institute of Reading sent in donations of £1,500 raised throughout the year. • The Running Horse pub in Bewdley held a family fun day and raised £1,217, of which £107 represents sponsorship raised by Neil’s hair shave.

Issue 65 | September to December 2014


General Fundraising • Don Russell took part in the 2014 Worcester City 10K and raised £235. • Maureen Savage sent in a donation of £145, including a donation of £25 from her employer BOC Group in Guildford. • Saxilby sent in a donation of £164 in respect of a recent coffee morning. • Matthew Scammels sent in a donation of £275. • Jonathan Scandrett sent in a donation of £100 in respect of his sons’ CRY screening. • Smile Impressions sent in a donation of £1,156.31 raised from the sale of CRY Patron Pixie Lott’s donated clothes. • Chris Smith took part in the Tough Mudder South West event and raised £235. • Hannah Smith sent in a donation of £100 in respect of the Bilsborrow Children’s Festival. • Katharine Ann Smith raised £765 through taking part in the Bupa Great North Run 2014. • Robin Smith raised £355 through running the Bupa London 10,000 2014. • Victoria Smith took part in a Brussels 20K race and raised £544.32. • Mohsin Harhara sent in a donation of £250 from his employer Smith & Williamson in respect of his participation in the Amsterdam Marathon. • Anna Stanley raised £220 through taking part in the Great Manchester Run 2014. • Jordan Stoughton took part in the Three Cities: London Amsterdam Brussels bike ride and raised £2,140: “So we set off from Stratford in quite depressing weather, was very wet on the first day in which we cycled approx 90 miles to Harwich to catch the ferry across to the Hook of Holland. We docked from Harwich at 11:30pm so we slept on the ferry on our way to Holland; we arrived at approx 8am local Dutch time. The real fun

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then begun when we cycled off the ferry and made our way to Amsterdam, again the weather wasn’t great but it did get better during the course of the day. We took in some sights en route to ‘Dam and I can say once we got into Amsterdam Central we were bombarded by bikes everywhere! Was mental! Not only do you see loads of bikes you hear them too – people dinging their bells! So that was approx 66 miles, next up was the big day, Turnhout was next on the map approx 110 miles away from Amsterdam and by day three the weather was beautiful if you wanted to sunbathe but cycling in it was hard – I’ve got very interesting tan lines going on right now! This was definitely the longest day sat on the saddle. At 7:45am we set off, didn’t reach the hotel until 6:45pm! I was a little sore shall I say but nothing a beer couldn’t help. Last day of cycling and it was towards Brussels, approx 70 miles, weather still very nice and touching 26 degrees! Getting on the saddle at the start of this day was hard – aching all over and sore knees – but it was all worth it once I got to this beautiful city and saw some of the amazing sights and the tram running through the middle of town, the sun still blazing and all of us going in convoy illuminating the streets of

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General Fundraising Brussels in our orange T-shirts. Should also add I got no punctures too! So yeah I can safely say I enjoyed every second of the ride and would do it all over again. I made some new friends and rekindled friendships too. My current money raised is £2,140 which I’m overwhelmed by – I hope this helps many people! Please add a massive thank you to Skyline too because without them none of this would have been possible. Such an organised event and a great bunch of people.” • Jack Sugrue raised £900 through taking part in the Prudential RideLondon-Surrey 100 2014.

• Barry Woolley sent in a donation of £175 raised by the staff at Switch Concepts taking part in a bake off: “The idea came from previous events that I have run at other companies, you can normally guarantee that there are budding bakers or chefs that want to show off their skills and in turn raise some money for charity. We had a host of people get involved and a had a wide range of culinary delights delivered, from gingerbread houses, to scotch eggs, to brownies, to holiday breads; it was not a time to be on a diet as you can imagine.”

• Lisa Sykes raised £255 from taking part in the Causeway Coast 10K. • Lauren Syme took part in the West Highland Way and sent in £250. “On the 5th of September we set off on the West Highland Way; myself, Lauren, Simon and Stephen, the weather warm and bright. The first 20 miles were covered in six hours; with only seven miles to go the route took us down a steep hill that went on and on until we got to the first hostel with sore feet and blisters. The second day, 25 miles to walk, Simon’s feet already very sore and blistered – after the second day he had to drop out. He was very upset but could not go on, the distance was never the problem; the terrain is very unforgiving, up and down with very long paths. The scenery is breathtaking and worth all the pain. The third day, about 26 miles again in the wilderness, 20 miles to Kings House, after that only nine miles to go up the Devil’s Staircase and into Kinlochleven to the Black Water Hostel with 16 miles left to walk into Fort William. We would like to say thank you for the opportunity to help your charity, may our efforts help your work.” Tom.

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• Emma Tanner raised £221.81 by taking part in the Warrior Adrenaline 5K. • myheart member Joseph Tanner sent in a donation of £878 raised by Team Alive (featuring former CRY staff member Kylie Wroe) taking part in the Spartan Beast 20km obstacle race: “Alive Fitness & Natural Health likes to get involved with charities, and I was pleased when Alive picked CRY to do the Spartan Race. It was touch and go if I was going to take part or not, I had to wait for my cardiologist’s consent before CRY would allow me to – which after taking part I understand; the Spartan Beast Race is a 20km, 26 obstacle course.

Issue 65 | September to December 2014


General Fundraising • Joseph Tanner sent in a matched giving donation of £868 from Alive Gym in respect of the Spartan Race on 11th October. • Tee to Green Marketing sent in a donation of £250. • William Thursfield took part in the 2014 London Triathlon and raised £137 for his two friends. • John Telling sent in a donation of £350 raised at a music festival held at The Royal Oak, Critchmere. • Anthony Toye took part in cycling over 260 miles over three events and raised £200. • Form 1M, Trinity School, Croydon, sold sweets on a recent non-uniform day and raised £100. • Jenny Tyler sent in a donation of £1,138.50 in respect of the Mount Snowdon event. It is very gruelling, and if I’m honest more punishing than any marathon that I’ve competed in! What makes the Spartan Race a challenge is the mud, trying not to fall over, swimming across lakes and carrying a tyre for over a mile. I finished fifth out of the team of 18 people that did it for CRY, I am really proud to complete the Spartan Race in 4hrs 42mins! Aroo, Aroo! I am Spartan!”

• UK Independent Medical sent in a donation of £350 raised at a dress down day. • Unum sent in total donations of £5,497.92: the London Sales Office’s quiz night raised £414.88; a cash raffle raised £418.99; the Unum Heritage Weekend raised £476.05; executive committee members at Unum taking part in the Ice Bucket Challenge raised £500, and a further £3,688 represented matched giving donations and reimbursement for Aspire expenses. • Phil Westlake, an Unum employee, took part in the “100km or Bust!” challenge and raised £1,527.77: “100km completed last Friday in 11 hours and 55 minutes at a cost of two toenails (not to worry, as I have eight remaining).”

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General Fundraising • Joanne Urch sent in a donation of £500 in respect of the Lion’s Club sponsorship for her taking part in a climb and trek. • Lauren Van Zyl took part in Nike We Own the Night and raised £205. • Emma Vann took part in the Bupa Great Manchester Run 2014 and raised £215.

dinner dance and raffle. • Kathie Wilkinson at Educare Nursery sent in a donation of £126.18. • James Williams and Julie Murray together raised a total of £1,335 through taking part in the Sure Run to the Beat 10K 2014.

• Adrienne Vates sent in a donation of £155.35.

• Tom Williams raised £400 through taking part in the Prudential RideLondon-Surrey 100 2014.

• Joanne Waite took part in the Grand Union Challenge and raised £187.94.

• Tracey Williamson sent in a donation of £100 from Chapel Street Medical Centre, Ashton-Under-Lyne.

• Steve Walker took part in the Cheltenham Marathon and raised £102.

• Greg Wilson took part in the White Watch Three Peaks Challenge 2014 and raised £577.50.

• Nick Walters took part in the 2014 Bristol 10K and raised £109.37.

• Alexandra Wiseman took part in the St Albans Half Marathon 2014 and raised £100.

• Mary Wardell raised £168 through completing the Great North Swim.

• Andy Wood took part in the Comrades Ultra Marathon and raised £406.

• Kathryn Wass raised £625 through taking part in the Prudential RideLondon-Surrey 100 2014.

• David Warner at Worldbikes, Stourbridge, sent in a donation of £100.

• Matthew Watson sent in a donation of £100.

• Mary Yeomans and Chris Douglas took part in the Three Peaks Challenge and raised £556.

• Mark Way raised a total of £2,254 through taking part in the Prudential RideLondon-Surrey 100 2014 and cycling from Geneva to Venice. • Richard Webb took part in the Three Peaks Challenge and raised £765. • Robert Wharton took part in the Doniford Bay cycle challenge and raised £195. • Brian Whaymand at the Parish Church of St John the Baptist, Malden, sent in a donation of £100. • Lauren White, John Toomey, James Wilson and Phillipa Pusey took part in the 2014 Tough Mudder event and raised £617.50. • George Whittaker took part in the Run the Thames event and raised £595.

• Joe Roshier and Rachael Porter at Yorkshire Building Society, Southampton, sent in total donations of £200 raised during the “Make a Difference Week” charity event.

• Natalie Reynolds at Whittington & Oswestry YFC sent in a donation of £253 raised at their annual

• Mariam Zahedi took part in the Tough Mudder event in the West Midlands and raised £110.

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Issue 65 | September to December 2014


Fundraising Events 2015 Please contact Ben, Cara or Nicola on 01737 363222 or e-mail events@c-r-y.org.uk if you are interested in any of the following events. For more information and a full list of events, visit www.c-r-y.org.uk/category/upcomingcryevents All participants in mass-participation events who contact the CRY fundraising team (whether they have their “own place” or a CRY charity place) will receive a “welcome pack” containing sponsor forms, information, helpful tips and either a T-shirt or vest (depending on the type of event).

2015 Virgin Money London Marathon

London 2 Brighton Challenge

Morrisons Great North Run

We welcome anyone who has been successful in the public ballot who would like to run for CRY. Please also get in touch if you are interested in a CRY place for 2016 and we will advise you when the public ballot opens and when we are taking applications via CRunCH. Demand for Golden Bond places always exceeds the number of places we have available, so please apply early.

Now one of the UK’s greatest endurance events – most of this year’s 3,000 challengers will walk the 100km, many will jog, and some will run it as an ultra-marathon. However you take it on, it’s a test of determination and stamina. It’s real, no gimmicks, is achievable, and could be the most rewarding experience you’ve had for ages! Contact CRY for more info or to register for a place.

The Great North Run is firmly established as the world’s greatest half marathon! CRY has a number of charity places and also welcomes any “own place” runners who would like to run for CRY.

April 26

Milton Keynes Marathon and Half Marathon May 4

May 23 – 24

Bupa London 10,000 May 25

With 4,500 acres of woodlands, lakesides, parks and landscaped areas within the city boundary, Milton Keynes is the ideal venue for a Green City Marathon. CRY can provide places for this event so if you would like to register or find out more information please contact us.

The Bupa London 10,000 starts and finishes in St James’s Park and uses Green Park as its assembly area. CRY welcomes any “own place” runners who would like to run for CRY.

Vitality Run Hackney Half Marathon

June 28

May 10

Already one of the top 10 half marathons in the country, Vitality Run Hackney is the fresh new half marathon to hit the capital! Lace up for a flat run through Hackney and the iconic Queen Elizabeth Olympic Park. CRY can provide places for this event so if you would like to register or find out more information please contact us.

CRY Heart of London Bridges Walk Join us on the ninth CRY Heart of London Bridges Walk to raise awareness and funds. The walk’s 8km (just under 5 mile) route will start at Victoria Embankment Gardens and finish at Hays Galleria, near London Bridge. Please visit www.c-r-y.org.uk/ events/cry-heart-london-bridges-walk to register for a place.

Spartan Race Series

Prudential RideLondonSurrey 100

The Spartan Race series integrates obstacles with the natural terrain to create the best racing experience possible. There are three levels of adult races, as well as a range of races for children. CRY has places for these events so if you would like to register or find out more information please contact us.

The Prudential RideLondon-Surrey 100 starts in Queen Elizabeth Olympic Park and then follows a 100 mile route on closed roads through the capital and into Surrey’s stunning countryside. CRY has a number of charity places for this event and welcomes any “own place” cyclists.

May 16 – September 27

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August 2

September 13

Sure Run to the Beat September 13

The Sure Run to the Beat 10K is London’s unique music running event set at Wembley Park. CRY has a number of charity places and also welcomes any “own place” runners who would like to run for CRY.

Windsor Running Festival September 26 – 27

The setting for the Windsor Running Festival is one of the most beautiful in the UK, the start and finish being the Long Walk with Windsor Castle as the backdrop. CRY has a limited number of charity places for the Running4Women Windsor 10K which takes place on Saturday 26th September and the Windsor Half Marathon which takes place on September 27th. CRY also welcomes any “own place” runners who would like to run for CRY.

CRY Durham Riverside Walk October 3 / 4 (TBC)

The sixth CRY Durham Riverside Walk will start and finish at Durham Amateur Rowing Club. The 7km (4 mile) walk is in the beautiful Wear Valley, following the river, with views of the city and cathedral. Please get in touch to register your interest and we will advise you when online registration opens.

Parachute Jumps Assorted dates

For further details, please visit www.c-r-y.org.uk/charity-fundraisingchallenge-events

Issue 65 | September to December 2014


CRY Update 65 September to December 2014 Our Fundraisers The involvement of our fundraisers has been crucial to helping CRY raise awareness about young sudden cardiac death (YSCD). By fundraising for CRY our supporters have, in addition to highlighting our cause, helped to finance and develop our Bereavement Support Programme, the CRY Centre for Cardiac Pathology (CRY CCP) and the CRY Centre for Inherited Cardiac Conditions and Sports Cardiology at St George’s Hospital, and the CRY myheart Network to support young people

living with potentially fatal cardiac conditions. CRY has also required funding to support medical research into YSCD, to subsidise and expand our national screening programme, our education programme and our campaign for ECG testing of the nation’s youth. Whether you are carrying out your own activity or taking part in an organised event such as the Virgin London Marathon or the Bupa Great North Run, remember that CRY will always support your effort with posters, literature, sponsor forms and other resources. If you would like to join our fundraisers, CRY also offers a range of free fundraising challenge events, including parachute jumps, white

Our Patrons

The urgency of CRY’s mission and the quality of our work has compelled many high profile personalities to give their time to become Patrons of our charity.

Current Patrons of CRY: Rob Andrew MBE,

John Barrowman MBE, Jeremy Bates, Ben Brown, Clive Clarke, James Cracknell OBE, Brian Dooher, Nick Easter, Jonny Evans, Baroness Ilora Finlay, Simon Halliday, Kathryn Harries, Michael Hoey, John Inverdale, Tom James MBE, Pat Jennings OBE KSG, Rob Key, Gary Longwell, Pixie Lott, Emily Maitlis, Graeme McDowell MBE, Professor William McKenna, Lee Mears, Bill Neely, Lawrence Okoye, Phil Packer MBE, Sir Steve Redgrave CBE, Joe Root, Andy Scott, Roger Taylor MBE, Professor Gaetano Thiene, Gregor Townsend MBE, Andrew Triggs-Hodge MBE, Andrew Trimble, David Walliams, Alison Waters, Matt Wells, Ray Wilkins MBE, Sir Clive Woodward OBE.

water rafting and a selection of trekking and cycling events. For more information visit www.c-r-y.org.uk/charityfundraising-challenge-events or contact the CRY office to request a fundraising ideas pack. There are many different ways you can donate to CRY. Online and cheque donations are the most popular methods, and we can also accept credit card donations over the phone. For further information telephone 01737 363222 or go to www.c-r-y.org.uk/donate All your help is greatly appreciated.

We can send regular information to CRY supporters via two distribution/mailing lists: 1. CRY Update magazine – postal mailing of CRY’s regular (three issues a year) news and events magazine. Includes reports from the CRY CEO and Deputy CEO; many pages of supporters’ fundraising; articles about screening, research, pathology, raising awareness initiatives, mass participation fundraising events, etc; and much more 2. CRY enewsletter – sent monthly via email; includes a link to an electronic version of the CRY Update magazine, as-andwhen each new issue of the Update is published If you would like to subscribe to, or unsubscribe from, either of these two distribution/mailing lists, please let us know by: • Going to the CRY website and completing the online subscribe /unsubscribe form at www.c-r-y.org.uk/contact-form • Calling the CRY office on 01737 363222 • Emailing the CRY office at cry@c-r-y.org.uk

Sir Ian Botham OBE Honorary President of CRY “It is not just athletes who are at risk of these heart disorders – it can happen to anyone. The problem has been swept under the carpet for too long and there have been too many excuses. I am a parent and a grandparent and I want to know that my kids and grandkids will be screened as a matter of course. It’s the only way we can prevent these sudden deaths occurring.” For more information about CRY’s Patrons, please go to www.c-r-y.org.uk/about-us/patrons

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Cardiac Risk in the Young Registered Charity No. 1050845

Our Mission When Cardiac Risk in the Young (CRY) was founded in 1995 it was the first organisation to draw attention to the range of conditions that can cause young sudden cardiac death (YSCD). These include diseases of the heart muscle, and electrical heart disorders which can lead to sudden arrhythmic death syndrome (SADS). Every week in the UK at least 12 apparently fit and healthy young people die of undiagnosed heart conditions. CRY aims to reduce the frequency of YSCD by working with

cardiologists and family doctors to establish good practice and appropriate screening facilities to promote and protect the cardiac health of our young. CRY believes cardiac screening should be accessible to all young people aged between 14 and 35. CRY also works to guide and support families and close friends affected by YSCD. The charity aims to put them in touch with people who have the appropriate knowledge and experience to answer their questions. We provide information to explain what the coroner does, practical guidelines to help with NHS referrals and advice on the procedures that usually follow a YSCD.

In addition, CRY publishes a range of medical information written by leading cardiologists that is easy to understand and made available to the public free of charge. Detailed information about cardiac abnormalities and the range of literature available from CRY can be found on our website at www.cr-y.org.uk/medical-information

CRY is grateful for grants or donations from trusts and foundations. We would like to thank the following for the generous support they have given us: ABBA Trust • Aspen Insurance UK Charity Committee • Mrs H C Beer Charitable Trust • Biggart Trust • The Black Family Charitable Trust • The Celtic Charity Fund • The Davey Foundation • E C Graham’s Charitable Settlement • Fitton Trust • Gwyneth Forrester Trust • The Freemasons’ Grand Charity • Hasluck Charitable Trust • Holbeck Charitable Trust • Hospital Saturday Fund Charitable Trust • Albert Hunt Trust • The Kirkby Foundation • Ladbrokes in the Community Charitable Trust • Charlotte Marshall Charitable Trust • Munro Charitable Trust • Pennycress Trust • Pharsalia Charitable Trust • The Christopher H R Reeves Charitable Trust • Sir Cliff Richard Charitable Trust • The Sobell Foundation • Sir Jules Thorn Charitable Trust • James Tudor Foundation • Tudor Foundation Inc • Artie White Foundation • The Whitehead Monckton Charitable Foundation

Tel: 01737 363222 Fax: 01737 363444 Email: cry@c-r-y.org.uk

visit our websites: www.c-r-y.org.uk www.sads.org.uk

@CRY_UK

/CardiacRiskintheYoung

Cry Update Magazine Issue 65  

Update 65 covers all CRY news, events and fundraising from September to December 2014. Some pages have not been reproduced in this edition d...

Cry Update Magazine Issue 65  

Update 65 covers all CRY news, events and fundraising from September to December 2014. Some pages have not been reproduced in this edition d...

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