CRY Update Magazine - Issue 51

Cardiac Risk in the Young Update 51 January to April 2010 News and Events

• raising awareness • our fundraisers

Cardiac Risk in theYoung (CRY) Head Office: Unit 7, Epsom Downs Metro Centre, Waterfield, Tadworth, Surrey KT20 5LR Tel: 01737 363222 Fax: 01737 363444 E-mail: cry@c-r-y.org.uk Visit our websites: www.c-r-y.org.uk • www.sads.org.uk Registered Charity No 1050845

CRY

update 51 January to March 2010

Contact the Editor Mair Shepherd mair@c-r-y.org.uk

Assistant Editor Alison Cox MBE Chief Executive

Contributors Dr Steve Cox Deputy Chief Executive Jemma Wells Medical Secretary to Dr Mary Sheppard Rebecca Zouvani Fundraising Manager Now on Twitter and Facebook

Inside Update 51 Meet our County Representatives

Page 3

News from the Chief Executive

Page 4

Newsletter from the Deputy Chief Executive

Page 8

Other CRY News

Page 9

Report from the CRY Centre for Cardiac Pathology (CRY CCP)

Page 10

CRY screening report

Page 11

CRY South postcard launch

Page 11

CRYSWIM 2010 launch

Page 12

Virgin London Marathon 2010

Page 14

Official launch of the CRY Centre for Inherited Cardiovascular Conditions and Sports Cardiology (CRY CICC&SC)

Page 20

Phil Packer’s “26” Marathon Challenge

Page 22

Surgery Supporters Network News

Page 26

Our Fundraisers

Page 28

Raising awareness in the media

Page 56

Fundraising highlights 2010 - 2011

Page 67

CRY Mission statements

Page 68

Cert no. SGS-COC-006445

This magazine is printed on chlorine-free paper taken from a sustainable source using vegetable-based inks.

Submission guidelines We only include activities in the ‘Our fundraisers’ section that raise £100 or more. If you would like to supply a write-up or photos for any fundraising activities that you have taken part in, please email the editor at mair@c-r-y.org.uk No part of this publication may be reproduced, stored in a retrieval system or transmitted in any form or by any means, electronic, mechanical, photocopying, recording or otherwise without prior permission of the Editor. The Editor and Committee welcome letters but reserve the right to edit when necessary and to withhold publication. Any opinion or statement by the author of any article or letter published does not necessarily represent the opinion of the Editor or Officers of the Committee. Articles pertaining to health related topics are for information only. Readers should obtain advice from their own practitioner before attempting to diagnose or administer any medication. Mention of any products or procedure should not be considered an endorsement for said product or procedure.

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www.c-r-y.org.uk

Meet our County

Representatives

Rosemary Attridge

Martin Appleby

We lost our precious middle child

When I was a young (20) Insurance Agent, I insured a young girl - single parent. She died suddenly, and the tragedy shook me.

County Representative for Surrey

County Representative for West London

Stuart, on 29 January 2006, aged 25 years.

He was playing his usual

Sunday morning game of football and literally dropped dead as he ran across the pitch.

A local GP watching the game did all she could and the paramedics were fantastic but there was nothing they could do.

My husband and I were in Barcelona and our eldest son Simon in Shanghai. Lucy, our daughter, rushed to the hospital expecting to be told he had broken a leg. She was only there a few minutes when the doctors came to break the news to her.

Stuart was a very fit and healthy young man - loved his lager and pretty young ladies! Throughout his life there had been no indication that there was anything wrong with his heart. Dr. Mary Sheppard discovered he had ARVC and had had it for a long time. How lucky we were to have him for 25 years.

Our local hospital screened us all within 6 weeks of his dying.

It was discovered that our youngest child, Lucy - then 23 years old - had major signs of it (ARVC) but her older brother Simon then aged 27 years - had only minor signs and within 48 hours we were at the Heart Hospital in London.

Lucy was subsequently fitted with a defibrillator which has saved her life. We were given all the information about CRY at the hospital and gave all donations from Stuart’s funeral to them. 600 people came to his funeral - it brought us a lot of comfort to know how much loved he was by so many. Our family circle has been broken and our lives will never be the same again. It still seems unbelievable that this has happened to us – it’s always someone else!!!

Genetic testing has shown that both my husband and I have defective DNA so our siblings and their children have all been screened as well. Fortunately all seem clear.

I phoned CRY a number of times in the following weeks and found them so helpful and kind.

It is

imperative that we raise the profile of CRY and help to prevent other families going through the agony of losing a child or a young partner.

This is why I now feel I would like to help by becoming a CRY County Representative.

www.c-r-y.org.uk

Stuart Attridge

I am an old colleague of CRY’s Fundraising Manager, Rebecca Zouvani, and I am relieved to discover that something can be done. At the time, no-one had any idea why the young girl had died.

Maureen Cooke County Representative for Dorset

My name is Maureen Cooke, I run a small country bed and breakfast business with my husband, Jonathan, in the beautiful village of Abbotsbury, in Dorset. I have two wonderful daughters, Natasha, nineteen years old, and Emily, seventeen years old.

We moved to Abbotsbury in 1994 from Bristol where I worked for eighteen years as a trained nurse for the N.H.S. Although I enjoyed every minute of my nursing career I was presented with the opportunity to move to Dorset and as the girls were young it was the right time to start a new life by the sea.

In 1998 whilst shopping in Weymouth I met a married couple whose daughter had recently died whilst competing in a swimming gala.

She was a fit, talented athlete but had suddenly and tragically been taken from them and the cause of death was due to an undetected heart defect. The look of utter grief and despair in their eyes haunted me for a very long time, every time I looked at my two beautiful daughters I could not even begin to imagine losing either of them, especially in such tragic circumstances. At that point I became aware of CRY as a charity and have been fund raising in small amounts since.

In 2008, I celebrated my fiftieth birthday and wanted to throw a party.

Family and friends started asking me what I wanted as presents, but to be honest at fifty, what does one need? I have enough ornaments, photo frames and bottles of wine to last a life time! It was obvious people wanted to give me a gift, so with every invitation sent out I put a CRY leaflet in the envelope and asked for donations to CRY, rather than presents. By the end of the evening we had raised £1,500. I was totally overwhelmed by the generosity of everyone and above all, a lot more people were made aware of the charity and the work that they do.

After my party I actually felt I had more to give to CRY than fund raising alone so when asked to be a County Representative I accepted the opportunity to fulfil the role of an active member, bringing awareness to the general public and hopefully being in a position to give comfort to families during such desperate times after losing a loved one.

CRY update • Issue 51 • 3

News

from the

Chief Executive Alison Cox MBE CRY Founder & Chief Executive

January Bill Neely becomes CRY Patron Journalist and International Editor for ITV News, Bill Neely, expresses his support “Having seen the horror of a young life cut short at the end of a summer run, I’m committed to helping CRY and to raising awareness of a silent killer we can all do more to combat.”

Representatives’ Information Day 30 January

Building on the success of the first Representatives’ Information Day held last year, thirty people attended this event held at the Haywain restaurant in Epsom. CRY representatives had the opportunity to find out about plans for the year ahead.

Presentations from myself and Director of Screening Dr Steve Cox were given to provide an overview of our aims for 2010.

February Northern Ireland Regional Bereavement Support Day 20 February

A small group of 8 attended the Northern Ireland bereavement support day, held at the Dunadry Hotel in Belfast. Groups were supported by CRY Bereavement Supporter Caroline Gard (pictured) and myself , with Tony Hill managing the event.

Ron Presley OBE memorial service 24 February

It was sad for all of us who knew him to learn of the death of Ron Presley (CRY’s first chairman) in December 2009. Ron’s interest in CRY, his contacts and influence, helped launch the charity in 1995 and it was because of Ron that we managed to do so in spite of a total lack of financial resources.

Ron put us in touch with a solicitor and an accountant who both had a special interest and expertise in charities. As a result of them donating their time free, we were able to start CRY owing only £30 - which was the cost of registering as a limited company.

To this day, CRY uses the same solicitor and accountants, although we are now able to compensate them for their services!

Crucially Ron also secured the interest of a major organisation, who anonymously made 3 successive annual donations of £10,000 over 3 years. These funds were used as a down payment on the purchase of an echocardiogram machine donated to St George’s Hospital, Tooting - the first hospital in the UK to have any interest in young sudden cardiac death.

The subsequent acquisition of the dedicated Acuson echocardiogram machine was funded through further donations from CRY families and supporters and also the generosity of Acuson echocardiographer Annette Jones through whom we made the purchase and who very generously waived her own significant bonus in support of our work.

The purchase of the Acuson echocardiogram machine facilitated the first clinic in the UK for families affected by conditions that can cause young sudden cardiac death, to be run from St George’s.

This interest has now gone full circle with the hospital’s appointment of Sanjay Sharma (our consultant cardiologist who trained at St George’s) as Professor of the new CRY Inherited Cardiovascular Conditions and Sports Cardiology Clinic.

Ron also ensured we had premises for Trustee meetings - first accommodated at his beautiful home in Surrey and then, as we expanded, at his offices off Bond Street. Ron and his wife Frances were pivotal to the success of one of CRY’s first events - an annual Wimbledon Fun Day held at the All England Lawn Tennis Club which raised many thousands of pounds over the years.

Ron’s memorial service on 24 February raised £2,320 for CRY.

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www.c-r-y.org.uk

News

from the

Chief Executive

ICAP Reception with Sanjay Sharma and Pat Jennings 25 February

ICAP hosted a reception for staff members and charity representatives to say a very big thank you to everyone for their efforts on the Charity Day held in December 2009, which raised £11,500,000 for selected charities.

The Swim4life project was first launched in April 2009 by Mr Burnham (then Secretary of State for Culture Media and Sport) and saw over a thousand local pools signing up to the scheme that offers free swimming to people aged 60 and over and 16 and under - giving 20 million people the chance to take part in an activity that they might otherwise not have had access to.

CRY Patron Pat Jennings collected the cheque on behalf of CRY from Michael Spencer, ICAP CEO. CRY supporter James Brown, Professor Sanjay Sharma, Dr Steve Cox and myself were also in attendance.

The funds that CRY received will launch CRY’s new screening initiative to offer screening to young people in the South East born in 1995.

Former CRY Research Fellow, Dr Sandeep Basavarajaiah, gets MD qualification Our congratulations to Dr Sandeep Basavarajaiah on getting his MD qualification. Sandeep is a former CRY Research Fellow and still takes part regularly in CRY screening clinics. On achieving his MD, Sandeep said “I am really grateful to CRY for supporting me and my hearty thanks to you.”

March CRYSWIM 2010 launched by by the Rt. Hon. Andy Burnham MP, Secretary of State for Health

And, to demonstrate his beliefs in the benefits of swimming - as well as his continued commitment to the charity, Cardiac Risk in the Young (CRY) in its 15th Anniversary year - Andy Burnham has also agreed to take part in the Great North Swim (swimming one mile across Lake Windermere) in exactly six months time on 4 September, pledging to raise money to help support the charity’s vital work and ongoing screening programme.

4 March

Students from Elsley Primary School and secondary school Ernest Bevin College (South West London) had a unique opportunity to meet the Secretary of State for Health, the Rt Hon Andy Burnham MP, on Thursday 4 March and to thank him for introducing the Swim4life initiative.

www.c-r-y.org.uk

Mr Burnham adds: “I am all too aware of the terrible impact that sudden cardiac death has on families across the UK, particularly following the death of a talented and popular young footballer in my constituency. Therefore, I am delighted to be supporting CRY’s work through my swim in September and with the launch of the CRYSWIM2010 project.”

CRY update • Issue 51 • 5

News

from the

Chief Executive off the waiting list for those who are awaiting support.

Run by our Course Tutor in the conference room of the Haywain, and externally moderated, participants will attend a residential training weekend every 8 weeks for the next 2 years to achieve their British Association of Counselling (BAC) Skills and Theory certification.

Scotland Regional Bereavement Support Day As a thank you to Ernest Bevin College for their help with the launch, Andy and I also announced that CRY would offer free heart screening to all pupils aged 14+ at the school.

For more details of the launch see pages 12 and 13, or visit www.c-r-y.org.uk/andy_burnham_swim.htm For more information about the CRYSWIM2010 initiative and how to get involved see page 12, or visit www.c-r-y.org.uk/ cryswim2010.htm

28 March

A group of 13 people (over 100 percent increase on last year) attended the Scotland RBSD, held at the beauitful Norton House Hotel in Edinburgh.

The event was managed by Tony Hill and groups were supported by CRY Bereavement Supporter Maralyn Bowen (pictured) and myself.

Postcard Campaign moves on to South of England 5 March

On Friday 5 March 2010, CRY’s ‘12 a week’ campaign postcard was launched in the South of England. The postcard features photos of 12 young people from across the South who lost their lives suddenly to previously undetected heart conditions.

It also provided an opportunity for those affected by young sudden cardiac death to meet others in their region. As always we also took with us the 12 silhouettes that have such a high impact in demonstrating the range of young people affected.

CRY chairman Hugh Mulcahey spoke about the impact on himself and his wife, Jane, on losing their daughter Madeleine and emphasised the importance of the impending campaign particularly relevant with the imminence of the election.

New Bereavement Supporter Training Course 26 March

I welcomed the fourth group of bereaved people starting their two year training course. This is good news for our Bereavement Support Coordinator Maria Carter as it will take some pressure

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Graeme McDowell becomes CRY Northern Ireland Patron

Northern Irish golfer and Ryder Cup player, Graeme McDowell, expresses his support “I would encourage everyone to get screened, whether you are involved in sport or not. I am honoured to be a Patron of CRY and I fully support its screening programme.”

Matt Wells becomes CRY Patron Photograph courtesy of Peter Spurrier

GB rower and Olympic Bronze Medallist, Matt Wells, expresses his support. “I chose CRY as my charity of choice for two reasons.

Firstly, a close friend’s brother recently passed away with cardiac symptoms and secondly I am aware of the work CRY does as I have had my heart checked through the fast track athletes screening service at the CRY Centre for Sports Cardiology. Thank you for the good work you do.”

www.c-r-y.org.uk

News April 109 CRY entrants in the Virgin London Marathon 2010

from the

Chief Executive

Launch of the Inherited Cardiac Conditions and Sports Cardiology Clinic at St George’s Hospital, Tooting 28 April

25 April

Congratulations and thank you to all our CRY runners in the 2010 Virgin London Marathon, which this year included CRY Patrons Simon Halliday and Bill Neely.

Your fantastic efforts are truly appreciated and we hope the aches and pains are now a distant memory! Thank you too, to all CRY volunteers who helped out on the day. Without your support the CRY ‘London Marathon experience’ would not be what it is.

Our post-marathon reception at the Hilton Hotel proved a popular meeting point, also giving participants a welcome massage and hot shower.

For more details and pictures see pages 14-19 or visit www.c-r-y.org.uk/london_marathon_2010_pics1.htm

Phil Packer’s “26” Marathon challenge 25 – 26 April

CRY Patron Phil Packer embarked upon a new London Marathon challenge for 2010 - walking the 26 mile course in 26 hours for 26 charities. Phil walked each mile with a ‘support walker’ from each participating charity in turn and for mile 2 was joined by CRY Surgery Supporters Network member, Laura John.

For more details and pictures see pages 22-25 or visit www.c-r-y.org.uk/london_marathon_2010_pics1.htm

The centre is the world’s first specialist, multi-disciplinary clinic dedicated to young sudden cardiac death and will operate under the direction of Professor Sanjay Sharma - Professor of Inherited Cardiovascular Conditions and Sports Cardiology at St George’s Hospital.

There were a number of speakers at the event, including Professor John Camm (Professor of Clinical Cardiology at St George’s Hospital); Professor Sanjay Sharma; James Brown, whose young wife Katrina died suddenly on the finish line of the British 10K London run in 2006; CRY Patron Nick Easter; and myself.

The launch was attended by guests from the medical professions, along with many CRY supporters.

There was also strong support from CRY’s Patrons with Jeremy Bates, Nick Easter, Simon Halliday, Pat Jennings and Matt Wells all in attendance.

For more details and pictures see pages 20-21 or visit www.c-r-y.org.uk/st_georges_ launch.htm

Jonny Evans becomes CRY Patron Photograph courtesy of Presseye

We are pleased to announce that Jonny Evans - Manchester United and Northern Ireland footballer - has become a Patron of CRY. Jonny says “I am pleased to be able to support CRY as a Patron. Young people need to look after themselves and understand more about their health.

I fully support CRY’s campaign for screening and greater awareness of potentially fatal cardiac conditions.

My advice is simple - use your head and check your heart.”

www.c-r-y.org.uk

CRY update • Issue 51 • 7

Newsletter

from the

Deputy Chief Executive

Dr. Steven Cox CRY Deputy Chief Executive In the last Update I wrote about some of the key ways in which CRY has had a major impact at both a local and national level. One of the great challenges, and I am regularly reminded of this, is how to convey what we do to those who support CRY and those who are interested to know more. This is often raised regarding the CRY website where it has been suggested there is an information overload. Although we continually receive positive statements about the website and the information that people have been able to access, it has grown in content considerably in the last 15 years.

With this in mind it would seem appropriate to revisit what CRY is “about”. This will probably mean something completely different to probably everyone who visits it! For families it may be about talking to someone who has suffered in the same way that they have or just knowing there is an organisation like us that exists. Or they may need to find a cardiologist who has the expertise to answer their questions and tell them if their child is at risk. For a doctor it may be to read about the latest research that we are publishing in leading journals, challenging their current beliefs and questioning their current practices. Journalists want to see what people are saying, know what the statistics are and to read about how many people are truly affected every week in the UK. The general public may just want to know about the screening programme, why they or their family should get tested, whether they want to go and where.

This is just a snapshot of the many people who will visit our website daily and we constantly review the best way to ensure that each person finds what they are looking for when they type in www.c-r-y. org.uk. A CRY volunteer (and IT WEB expert) is currently giving the website a complete overhaul which will help to address some of the difficulties we have had in the past, with the added strength of streamlining the way we publish the data on the website. The website is updated daily and it is fantastic that there is now the opportunity to take this mammoth task forward.

So what is it that is most important to CRY? Some of you will have received information about how donations are used when sending in the first “in memory” donation or you will have read about this in our general leaflet.

Our key areas are Raising Awareness, Support, Screening and Research. These four areas have not changed in importance since CRY was founded in 1995.

Why has Raising Awareness always been the key?

Quite simply people need to know who will be able to help them if their family has suffered a young sudden death. They need to know about these conditions so they can make an informed choice, whether they want to be tested for these genetic conditions and how.

By constantly raising awareness in their local community people who need CRY’s support can find us.

CRY’s support programme When Alison trained as a bereavement counsellor her one concern was to support families after losing their child/sibling or partner. As CRY’s screening programme develops and more doctors become skilled in identifying these conditions more people will be diagnosed and need support of a different kind. In the future we are aiming for

8 • CRY update • Issue 51

the day where CRY’s programme is dedicated to supporting people identified with conditions because young people will no longer be dying but being diagnosed and treated.

Why is cardiac screening so important?

Systematic screening programmes are needed to establish the prevalence of cardiac conditions in the young. The aim of a screening programme is to detect a condition or its risk factors. Once detected, preventative or therapeutic interventions can be implemented earlier and the condition can be treated when it is less advanced. In the case of cardiac conditions, the aim is to put in place treatments and lifestyle changes that minimise the risk of a sudden cardiac death.

These preventative actions may also include medications and surgery. In some cases the condition can be cured with the risk of sudden cardiac death removed. CRY’s screening programme is for the general public (between the age of 14 and 35) and schools as well as sports clubs and elite teams.

How does CRY fund medical research into young sudden cardiac death?

Often supporters are not aware of how critical research is to CRY and how respected CRY’s work is internationally. CRY funds medical research through research grants. These grants cover a broad spectrum from fast track screening to pathology after a death. The grants also help to provide specialist knowledge of sports cardiology.

The field-gathered data in CRY’s screening programme is analysed and reported in peer review journals, providing essential information on the understanding of these conditions.

Central to everything that CRY does with raising awareness, support, screening and research is Fast-track Service Provision through the CRY Centres for Inherited Cardiovascular Conditions, Sports Cardiology and Cardiac Pathology. Through these services families will receive fast and expert advice about what has happened, without the long delays and repeat appointments which create unnecessary additional stress at an already horrendous time.

We are now half way through 2010 and are already booking screening events for June 2011. The CRY Philips Test My Heart Tour 2010 has most venues confirmed and will be announced after the summer break. The ICAP clinics have started at St George’s hospital, with 100’s of people reserving places for future clinics. Significant developments have taken place in elite sport where screening has really been taken on board as an essential component of players/ athletes welfare. Five new CRY Research Fellows will be starting in October at St George’s Hospital to take forward what has become the largest referral clinic in the country, and probably the world, for inherited cardiovascular conditions. Although there is no joy to be taken in the fact that more families are contacting CRY than ever before after a tragedy, at least families who are looking for help are able to find someone who will listen and try to understand.’ to: Although there is no joy to be taken in the fact that more families are contacting CRY than ever before, at least families who are looking for help are able to find an organisation dedicated exclusively to helping them and who will listen and try to understand.

Best wishes

Steve Cox Deputy Chief Executive

www.c-r-y.org.uk

Other

CRY News

2010 marks the 15th anniversary of CRY. CRY was founded in 1995 by Alison Cox and launched on BBC News by Maureen Marshall mother of brilliant young international footballer John who died suddenly at the age of 16 on the day he was due to join Everton. CRY was started to raise awareness of conditions that can lead to Young Sudden Cardiac Death (YSCD); Sudden Death Syndrome (SDS, SADS).

Funds raised in the 15th anniversary year of CRY will support a range of projects including a new project where screening will be offered to every young person in the South East and born in 1995 – the year that CRY was founded – helping to lay the foundations of a national screening programme in the future. It will also be the second year of the successful CRY Philips Test My Heart Tour – a nationwide mobile screening campaign which has already tested 2,500 people across the UK of which 14 so far have been found to have serious previously undiagnosed cardiac conditions.

In January, the ‘My Story’ section on the CRY website was launched after being re-designed and expanded. As well as written articles, the ‘My Story’ section is also now a place to share your poems, songs, paintings / images and videos in memory of a young sudden cardiac death tragedy that has affected you. Furthermore, CRY has become a partner with MuchLoved – a website that enables to build your own memorial webpage in whatever manner you wish. See the site at www.cry.org.uk/my_story.htm

In February, Channel Five News presented an item about young sudden cardiac death. It featured interviews from CRY supporter Julie Donnelly, who spoke of the agony of losing Adam (age 17), and CRY consultant cardiologist Professor Sanjay Sharma. If you missed the piece you can watch it on youtube via the following link: http://bit.ly/Ch5news

CRY has produced a new screening information leaflet which gives a step-bystep guide to CRY’s screening procedures.

The leaflet aims to help people make an informed choice about whether to have their heart tested, and is also of interest to anyone who wants to know why screening is important; what actually happens at a CRY screening; what happens to people’s screening results; and so on. The leaflet can be downloaded as a PDF from the CRY website and hardcopies can also be requested (free of charge) by contacting the CRY office. We are grateful to the James Tudor Foundation for funding this publication.

www.c-r-y.org.uk

CRY update • Issue 51 • 9

Report from the CRY

Centre for Cardiac Pathology

(CRY CCP)

By Jemma Wells, Dr. Mary Sheppard’s Medical Secretary at the CRY CCP.

The year got off to a strong start with an increase in referrals each month, highlighting our success as a national referral centre. There were 40 referrals over the 3 month period compared to 30 for the same period in 2009. Despite the number of referrals increasing we aim to maintain our target average turnaround of 14 days as CRY has now added a designated research technician to the unit in addition to the current team to help with the work load.

We welcomed Saharnaz Vakhshouri in January 2010 to this post at the CRY Centre for Cardiac Pathology. Saharnaz will deal with the increasing number of referrals, processing cases, and assisting in the various research projects that Dr Sheppard and her team are working on. In March 2010 the parents of Sarah Bennett visited Dr Sheppard at the Royal Brompton Hospital to talk about their daughter’s death. They also gave a donation of £5,000 from Mrs Bennett’s employer to the CRY Centre of Cardiac Pathology towards the research into detecting congenital heart defects in young people.

Dr Keiko Ogo, a cardiologist from Japan, was recently awarded a travel grant of £3,500 from the Sasakawa Foundation. The foundation aim to develop good relationships between the UK and Japan by supporting activities in various fields, including medicine.

In addition to undergraduate students, Dr Sheppard has also been host to Dr Ogo who has carried out a number of projects looking in to sudden cardiac death in pregnancy. Dr Ogo has presented her work at these meetings as well as presenting at the Royal Brompton Hospital Grand Round meeting.

As well as clinical work, Dr Sheppard gives regular lectures at Imperial College London and is regularly invited to lecture at Christchurch Canterbury University. Dr Sheppard is also a guest speaker at meetings and conferences nationally and internationally and will be attending conferences in Ireland, Prague and Brazil later on this year. She was invited to speak for the ‘Meet the experts’ session at the Pathology Society of Great Britain and Ireland, Winter 2010 Meeting, London held 6 – 8 January 2010.

Dr Sheppard takes on undergraduate students from the university to work on various projects on young sudden cardiac death.

Current students Kush Patel, Roxanni Georgiou and Dinnish Baskaran, as part of the Undergraduate Research Opportunity Programme, are working on projects about ARVC, sudden death in restraint and mitral valve prolapse respectively. Hudaifa Alani is currently working on a BSc project on sudden death in association with alcohol.

So far this year, students have presented work at the Pathological Society for Great Britain and Ireland Winter Meeting in January and the United States and Canadian Academy of Pathology (USCAP) Annual Meeting in March as well as at a Symposium held in honour of Prof Philip Poole-Wilson at the National Heart and Lung Institute. Abstracts have been presented at various medical meetings on sudden death in young people covering a variety of topics, including ‘Setting up of a Pathology Laboratory to Investigate Sudden Cardiac Death’ and ‘Cardiopulmonary Causes of Maternal Deaths from 1994 to 2009 in the United Kingdom’.

Dr Sheppard was involved in producing 5 research papers during January to April which were published in a variety of peer-reviewed journals and 2 articles were also published; Left ventricular hypertrophy in Sport and UK Cardiac Pathology Network.

Dr Mary Sheppard – Consultant Cardiac Pathologist

Dr Sofia de Noronha – Research Assistant to Dr Sheppard

She wrote chapters for 2 books and contributed to international guidelines; AECVP and SCVP 2009 Recommendations for Training in cardiovascular Pathology and Guidelines for Endomyocardial Biopsies. She is currently writing Practical Cardiovascular Pathology (Second Edition) which is to be published in 2010.

Jemma Wells – PA to Dr Sheppard

Saharnaz Vakhshouri – Laboratory Technician

Dr Sheppard at work in the CRY CCP laboratory

10 • CRY update • Issue 51

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CRY Screening report In the 4 month period from January to April 2010, CRY screened nearly 2,000 people. Almost a third of these were conducted at family memorial screenings.

439 people were screened at 3 family memorial screenings – these were held in memory of Nathan Butler (Newcastle-under-Lyme), Martyn Luckett (Bude) and Zoe Teale (Cannock).

Sports screenings included Rugby Football League, GB Paralympic swimming, GB Cycling, GB Taekwando, England Rugby U16’s, Boxing, GB Squash, Paraplegic Shooters, Waterpolo and the Lawn Tennis Association. 240 athletes were screened in total.

9 schools held screenings in this period; Bryanston School (Dorset); Eton College (Windsor); Kings School (Bruton); Millfield School (Somerset); Codicote Primary School (Hertfordshire); Canford School (Dorset); Queen Elizabeth Hospital School (Bristol); Cranleigh School (Surrey); and the Bishop Stortford High School (Hertfordshire), where the screening was held in memory of Caroline Johnstone. In total, 631 people were screened at these events.

There were also 2 screenings for staff at the London and Bristol offices of King Sturge (the commercial property developers). At theses screenings, 124 staff were screened.

At our regular CRY clinics, 407 people were screened at the public screenings held in Belfast and Colchester.

What happens at a screening?

The basic test is an electrocardiogram (ECG) which is a simple non-invasive and painless test that examines the electrical activity within your heart. The ECG involves lying down quietly and it only takes 5-10 minutes. Small stickers are placed at strategic points on your chest, arms and legs. Flexible leads (known as electrodes) that extend from the ECG machine are then attached to these stickers. The electrical rhythm of your heart is recorded and printed out. This part of the process only takes 2-3 minutes to perform.

The ECG printout is then reviewed by a doctor in conjunction with a personal and family history questionnaire.

If a more detailed image is needed (about 5% – 10% of individuals), an echocardiogram (ECHO) can be taken – this is similar to the ultrasound scan that is used for a pregnant woman to check the health of her baby. Soundwaves echo against various parts of the heart and they are recorded on a screen. This provides a detailed picture of your heart’s structure and how well it is functioning. This takes about 30 minutes to perform. CRY uses top of the range machinery donated by Philips for the screening programme. The screening programme is under the aegis of Professor Sanjay Sharma.

CRY South postcard launch CRY maintained the momentum of ’12 a week’ postcard campaign in 2010 with the South regional postcard launch on 5 March.

Hugh, CRY’s new chairman, spoke of the devastating loss and its effect on the family.

Bereaved families from across the South of England joined together to help launch CRY’s new ’12 a week’ postcard campaign in their region of the UK. A poster-sized version of an emotive new postcard - featuring the photos of 12 young people from across the region who lost their lives suddenly to previously undetected heart conditions – was unveiled at The Four Pillars Hotel in Witney (Oxfordshire) on Friday March 5.

The postcard includes a picture of Madeleine Mulcahey who died suddenly from a heart problem in 2000 at 2 years old. Her father

www.c-r-y.org.uk

This month, hundreds of postcards will be distributed by CRY families and supporters to people across the South of England urging them to return these to their local MP. It is hoped the influx of postcards will encourage MPs to confirm their support for the campaign and join the Cardiac Risk in the Young All Party Parliamentary Group.

For more information, please visit www.c-r-y. org.uk/south_postcard_ launch_2010.htm

CRY update • Issue 51 • 11

CRYSWIM

2010

Launch

Students from Tooting’s Elsley Primary School and secondary school Ernest Bevin College had a unique opportunity to meet the Secretary of State for Health, Rt Hon Andy Burnham MP on Thursday 4 March and to thank him for introducing the Swim4life initiative that provides under 16s across the UK with free swimming.

This year, to demonstrate his beliefs in the benefits of swimming

Three years later, when 16 year old Daniel Young from Atherton

- as well as his continued commitment to the charity, Cardiac

collapsed and died whilst playing football, Mr Burnham was

Risk in the Young (CRY) - Andy Burnham has also agreed to

invited by Daniel’s parents - Dionne and Craig - to attend a CRY

take part in the Great North Swim (swimming one mile across

cardiac testing event funded by donations from the community.

Lake Windermere) on 4 September, pledging to raise money

Since then, he has openly pledged to help address the issue of

to help support the charity’s vital work and ongoing screening

sudden cardiac death in the young, which currently claims the

programme.

lives of at least 12 apparently fit and healthy people, aged 35 and under, in the UK every week.

Mr Burnham first became involved with the charity in 2002 as a backbencher shortly after becoming an MP. He was one of the founder members of the Cardiac Risk in the Young All Party Parliamentary Group (APPG).

“Everyone that supports this swim will know that they are making an important contribution to CRY’s work to reduce that statistic and in helping to develop their well established and ground-breaking screening programme and the vital research it yields.” Rt Hon Andy Burnham MP

12 • CRY update • Issue 51

www.c-r-y.org.uk

CRYSWIM

2010

Launch

In addition to raising awareness of the Swim4Life initiative, CRYSWIM2010 will encourage young people across the UK to develop a greater understanding of CRY’s work and the importance of cardiac screening, whilst allowing them to have fun and keep fit whilst trying to raise funds for the charity.

Schools and families across the UK – many of whom have tragically been affected by sudden cardiac death – will be organising “swims” between March and November to help raise funds for Andy Burnham’s swim.

There is no registration fee and the first 10,000 young people to register will receive a CRY 15th anniversary wristband. The first 10,000 pupils whose class returns their fundraising will receive a CRY swim bag and drinks bottle.

“CRY has pushed cardiac risk in the young into the consciousness of government and through their screening programme, their centres for Inherited Cardiac Conditions, Sports Cardiology and Pathology which have shown us what can be done to reduce the risk of young sudden cardiac death.”

Rt Hon Andy Burnham MP

CRYSWIM 2010 is a national swimming event appealing mainly (but not exclusively) to Primary and Secondary Schools. This initiative runs from 1st March 2010 to 30th November 2010.

The aims of CRYSWIM 2010 are (1) to raise awareness of free swimming for under 16’s, which has been hugely welcomed by so many schoolchildren; and (2) to fundraise for CRY through sponsoring Andy’s Great North Swim.

CRY would like schools - and individuals - to support Andy’s swim by organising sponsored swimming events of their own all around the country.

Anyone organising a sponsored swim to support Andy and raise funds for CRY can register their event online at www.cryswim4andy.org For more information about the CRYSWIM2010 initiative, please visit www.c-r-y.org.uk/cryswim2010.htm For more photos and videos from the launch visit www.c-r-y.org.uk/andy_burnham_swim.htm

www.c-r-y.org.uk

CRY update • Issue 51 • 13

Virgin

London Marathon

2010 A big thank-you to everyone who ran for CRY and to all those who supported our runners. At the 2010 Virgin London Marathon we had a total of 109 runners. 81 of these were Golden Bond runners and 28 of these donated their own places to run for CRY. The total raised so far is an amazing £188,513.78.

“Pain is temporary, quitting is forever.” David Allen - running in memory of Kerry-Anne Offord and David Nunoo

“If you are considering doing it then DO IT - it is incredibly rewarding.”

Paul Hammett - running in memory of Andy Forbes

14 • CRY update • Issue 51

www.c-r-y.org.uk

Virgin

London Marathon

2010

“Great cause but never again! Big well done to everyone else! Fantastic to have a massage” Carl Clayton - running in memory of Louisa Clayton

“Makes you feel powerful being able to do this - you never think you could complete it.

Every time I felt like stopping I thought of Ed and he got me going again.” Sean Reading running in memory of Edward Reading

www.c-r-y.org.uk

CRY update • Issue 51 • 15

Virgin

London Marathon

2010

“CRY has helped Jonathan’s family immeasurably. His family came and supported me which made it a very meaningful day. I have been very pleased to help. I have walked the Marathon for the last 2 years and CRY was the charity I wanted to raise money for.” Richard Shand - running in memory of Jonathan Hooper

“I was thankful it was not as hot as predicted, as the heart suit would have been a ‘little warm’.

As it was it was fine and the response from the crowd was unbelievable, I would recommend it to anybody. You never know I might even do it again!” Kevin Marsden - running in memory of Oliver Marsden

“I lost a friend, Dave Gellet (30), two years ago in a football game - I was playing too. I needed to know what happened and found the CRY website. I thought of him during run, doing it for him - thought he would give me a kick up the backside to help me along.” Chris Speed - running in memory of Dave Gellet

16 • CRY update • Issue 51

www.c-r-y.org.uk

Virgin

London Marathon

2010

“Thank you to CRY for the opportunity to do this. I feel anything is possible now and would recommend it to anyone to do. Such a relief to be brought in a minibus to the hotel and not to have to walk!”

Charlotte Luckett - running in memory of Martyn Luckett

“The people who sponsored me £3 a mile will be sorry, they thought I’d never finish!” Neil Robertson running in memory of Mark Young

www.c-r-y.org.uk

CRY update • Issue 51 • 17

Virgin

London Marathon

2010

] “Had great support, such a worthy cause.

Glad to be able to help.

Thinking of Ben drove me on so much.” James Salter-Boyden - running in memory of Ben Newton

“It was worth the months of training to cross the finish line.” Catherine Lyness - running in memory of Stephen Lyness

18 • CRY update • Issue 51

www.c-r-y.org.uk

Virgin

London Marathon

2010

Our runners in 2010: CRY Heart Costume runners: Kevin Danagher Andrew Jackson Kevin Marsden

Andrew Tomlinson John Weatherall

More CRY runners: Suzanne Abbott David Allen George Ballard Chris Barnes Tom Bazeley John Beck Edward Blad Mark Blease Rob Borthwick Jack Bowen Ian Brightwell Sally-Ann Brightwell David Brown Olivia Brown Jim Burton Tim Burton Matthew Chapman Carl Clayton James Connelly Lisa Cooper Ioan Davies Mariano Dima Terry Donovan Huw Edwards Richard Edwards Richard Feist Matthew Filkin Matt Fisher Vickie Ford Paul Garmeson Rebecca Gibson

Chris Gordon Matt Greenwood Stephen Haasz David Halliday Simon Halliday (CRY Patron) Paul Hammett Robert Henderson Katy Herbert Marian Herbert Keith Hibberd Lucy Hibberd Michael Hicks Lisa Hines Barry Holcombe Alistair Holland Stephen Holmes George Hughes Shaun Kamis Matthew Kiernan Jennifer Livesey Rachel Livesey Michael Logan Mark Longstaff Annmarie Loughlin Michael Love Sharon Love Katie Lovett Charlotte Luckett Paul Lynch Catherine Lyness Patrick Lyness

Josh MacDonald George McAlpin Garry McGrotty Tom Mckirdy Claire-Bridget McLaughlin Aoife McMahon Matthew McSwiggan Paul Moss Robert Mullane Bill Neely (CRY Patron) Mark Nicholas Matthew Nicholson Sam Nicholson Thomas O’Flaherty Neil O’Sullivan Nick Oliver Tom Oliver Daniel Ousby Colin Oxslade Sarah Parsons Darryl Pickering Mitchell Porter Fran Powell Helen Pyne Emma Ralston Sean Reading Ian Ritchie Neil Robertson Jonathan Rosenbrier James Salter-Boyden, Richard Shand Chris Speed

Our thanks also to the following volunteers who helped out on the day: Nigel Bennett Shelly Connolly Bob and Carol Finch Frances and Paul Gardner Mark and Marcia Hearne Jim and Barbara Holland

Steve Jackson Tasha Jackson Jane Jukes James Loder Koula Louki Martin Peaple

Gill Stevens Richard Thompson Patricia Thornton Jemma Wells

And thanks to the masseuses and masseurs Yvonne Cheung Samuel Downs Emily Flowerday Emma Gibson Alexandra Hough

Elliot Kennard Emily Lawson Jessica Masters Danielle Robinson Rebecca Sheeley

Luis Sousa Corinna Wolfman Michael Workman

For more pictures, visit www.c-r-y.org.uk/london_marathon_2010_pics1.htm For more quotes, visit www.c-r-y.org.uk/london_marathon_quotes.htm

www.c-r-y.org.uk

CRY update • Issue 51 • 19

Official launch of the CRY

Centre for Inherited Cardiovascular Conditions and Sports Cardiology

On Wednesday 28 April 2010, the CRY Centre for Inherited Cardiovascular Conditions and Sports Cardiology at St George’s Hospital was officially launched.

The centre is the world’s first specialist, multi-disciplinary clinic dedicated to young sudden cardiac death and will operate under the direction of Professor Sanjay Sharma - Professor of Inherited Cardiovascular Conditions and Sports Cardiology at St George’s Hospital.

Hospital); Professor Sanjay Sharma; James Brown, whose young wife Katrina died suddenly on the finish line of the British 10K London run in 2006; CRY Patron Nick Easter; and Alison Cox MBE, CRY Chief Executive.

There were a number of speakers at the event, including Professor John Camm (Professor of Clinical Cardiology at St George’s

The launch was attended by guests from the medical professions, including the cardiology unit at St. George’s Hospital, along with many CRY supporters.

Professor John Camm

James Brown

20 • CRY update • Issue 51

Professor Sanjay Sharma

Nick Easter

www.c-r-y.org.uk

Official launch of the CRY

Centre for Inherited Cardiovascular Conditions and Sports Cardiology

There was also strong support from CRY’s Patrons with Jeremy Bates, Nick Easter, Simon Halliday, Pat Jennings and Matt Wells all in attendance.

One of the first uses of the Centre will be to accommodate the ‘1995’ screening initiative - made possible thanks to a charitable grant from ICAP, the interdealer broker. This screening initiative - to offer screening to every young person born in 1995 (the year that CRY was founded) across the South East - is supported by teenager, James Bailey (below), who last year (aged just 17) was diagnosed with the potentially fatal heart condition, WolffParkinson White (WPW) syndrome during a CRY screening session held at his school. A seemingly healthy and active young man, with a passion for football, James’ heart was a ticking timebomb and he could have literally ‘dropped dead’ without warning.

The “general population” will be able to access nationwide screening services through the rapidly developing mobile screening programme co-ordinated from this Centre. Elite athletes will attend the world renowned CRY Centre for Sports Cardiology.

Experts at the Centre will be able to support teenagers in the journey from screening through to possible diagnosis and treatment and, where necessary, counselling and support, working on the genetics of hereditary cardiac defects and helping families understand their ‘heart history’.

But, thanks to screening, his condition was successfully treated he is now studying for his exams and enjoying life as a normal 18 year old (as well as raising funds for CRY).

Families already affected by sudden cardiac death will also have access to this unique clinic, dedicated to inherited cardiovascular disease and sports cardiology.

www.c-r-y.org.uk

For more pictures from the launch, visit www.c-r-y.org.uk/st_ georges_launch.htm In the next issue of Update we will feature the first of a series of interviews with the CRY Research Fellows explaining the importance of the CRY research programme

CRY update • Issue 51 • 21

Phil Packer’s “26”

Marathon challenge

CRY Patron Phil Packer embarked upon a new London Marathon challenge for 2010 - walking the 26 mile course in 26 hours for 26 charities. Thanks to all who supported Phil and Laura. A fantastic total of £1,316.60 was raised.

Phil walked each mile with a ‘support walker’ from each participating charity in turn. CRY supporter and Surgery Supporters Network member, Laura John, joined Phil for one mile of the challenge,

“As a Patron of Cardiac Risk in the Young I have had the humbling opportunity to meet the remarkable young people who have been diagnosed with a life threatening cardiac condition and also the many families who have been affected through the tragedy of losing loved ones through sudden cardiac death. CRY aims to prevent young sudden cardiac death and more support to the charity will result in more screening to find heart abnormalities which otherwise may go unnoticed. I will be walking the CRY mile with Laura John. Laura was 4 years old when her father, David, died suddenly at work aged 32. When Laura’s mother, Julie, was watching a Panorama special about sudden death two years later, it was explained that most forms of sudden death are

and all 26 charity support walkers walked the final 365 yards with Phil to cross the finish line together.

her sister, Danielle, were referred to an expert and tested.

At the time, Laura was terrified and there wasn’t anyone talk to who was going through the same thing. When Laura was 10 she was fitted with an ICD (Implantable Cardioverter Defibrillator) and it was fantastic, allowing Laura to do so much more. Danielle and Laura became founder members of CRY’s Surgery Supporters Network and Laura and I hope that walking the mile together, we will raise the profile of the vital support needed to ensure that in the 15th Anniversary year of CRY’s existence, you will donate to fund future screening for young people with undiagnosed life threatening cardiac conditions.”

Phil Packer

hereditary. This led to Julie fighting to ensure Laura and

22 • CRY update • Issue 51

www.c-r-y.org.uk

Phil Packer’s “26”

Marathon challenge

Phil Packer, who suffered severe spinal cord injuries in 2008 and has raised over £1.3million for charity by rowing the English Channel, walking the London Marathon over 14 days and hauling himself up El Capitan (over 4250 pull ups in 3 days) all within a six month period last year, successfully walked this year’s Virgin London Marathon in 26 hours for 26 charities.

To fully understand exactly what young people need, I asked for representatives from 26 charities to join me as my official support walker as I completed the 2010 Virgin London Marathon in 26 hours. My partnering charities, all of which support young people with disabilities, young deprived people or injured service personnel, will also be invited to assist me with their knowledge in running the Centre.

At 1000 hrs on Sunday 25th April, Phil started the Virgin London Marathon and finished 26 hours later at 1200 hrs on Monday 26th April. To continue his intent and aim to inspire young people with disability, deprived young people and to support injured service personnel, he walked each mile with a Support Walker between the ages of 16 and 25 who were nominated by each charity and all whom will have received direct support from their charity.

“The aim for all the charities was to use my 26 hour Marathon opportunity to raise awareness and funds over 26 days, beginning the 1st of April and ending the 26th of April. The last 365 yards of the Virgin London Marathon saw all 26 young people from the charities joining me as we crossed the finish line together.

Phil has continued to enthuse and motivate millions and last year received the Helen Rollason Award at the BBC Sports Personality of the Year Awards and the Pride of Britain Fundraiser of the Year.

Phil says: “My own personal journey over the past two years and the relationships I have established with a number of charities, young people with disabilities and their families, has increased my knowledge and understanding of the challenges those living with disability face daily. The outpouring of public support, whilst serving to highlight the need to support our injured, only scratches the surface of the wider support needed to assist those that endure huge physical and mental challenges within our country every day.

“My intent was to ask Young People with Disabilities to join me in supporting my future plan to build the British Inspiration Trust, and for their charities and support groups to partner with me.

www.c-r-y.org.uk

“There is a clear need to provide inspiration and hope to young people. On completion of the Marathon, I am concentrating my efforts on building a multi-million pound, eco-friendly British Centre of Excellence. The Centre, dynamic and unique, will be a conduit to enthuse and inspire Young People with Disabilities, including our injured service personnel, between the ages of 16 and 25. The British Inspiration Trust (BRIT) will serve not only as a hub of British Inspiration, but will provide a legacy for generations of young people. I will build it by 2012.

“With increasing support from Young People and Young People with Disabilities joining me in my Quest, my intent is to gain the support of Government, Businesses through their Corporate Social Responsibilities strategies and the public to assist me in delivering a British “Beacon of Inspiration” to improve Quality of Life. I will launch BRIT later this year with the support of the National Media.”

For more information on Phil’s remarkable challenge, go to www.philpacker.com

CRY update • Issue 51 • 23

Phil Packer’s “26”

Marathon challenge

Laura John’s Story When I was 4 years old, my father David died suddenly at work, leaving my mother Julie looking after myself and my older sister Danielle. My Dad was 32 and according to the coroner ‘perfectly fit and healthy’. All my mother was told was that he had died of heart failure but that there was no apparent reason for this. Being only 4 years old, I didn’t quite understand how serious this was, I assumed that it was just one of those things that happen.

It took some time for this to actually happen, my mum had to fight against the Health Authority for Danielle and I to be referred to an expert in London, but in the end we were tested and found to have long QT syndrome. We were introduced to CRY who could help my mother with understanding about our condition and gave her the support she needed. But for a six year old to understand was not easy. The only thing I knew about this condition was that it had killed my Dad.

It wasn’t until 2 years later when my mother was watching a Panorama special about sudden death that the lives of me and my sister were completely turned upside down. It turns out that most forms of sudden death are hereditary. Around the same time as this my Uncle had been diagnosed with long QT syndrome and it was decided that me and Danielle should be tested too.

What made it worse was that on seeing a Cardiologist back in Southampton he told my mum a whole load of things I wouldn’t be allowed to do. I was terrified, Danielle was frustrated and Mum became over protective. We managed but it was hard.

There wasn’t anyone at the time we could talk to who was going through the same thing. Danielle began blacking out, and this only made it scarier.

24 • CRY update • Issue 51

www.c-r-y.org.uk

Phil Packer’s “26”

When I was 10 I had an ICD fitted and it was fantastic. It eased mum’s mind and allowed me and Danielle to do more ‘normal things’ (That said, now I tend to use my defib’ as an excuse to do more than perhaps I should). It was a year or two after this that Danielle and I became founder members of CRY’s Surgery Supporters Network. Finally we had other people to talk to who were our age and going through similar things. It was so comforting to know that not only were there people I could turn to, but that others in the future would be able to turn to me too.

Marathon challenge

proud to have been chosen to be Phil Packer’s support walker for CRY for the “26” marathon challenge.

The whole thing has been one huge adventure, and as scared as I was, it’s made me who I am. I’m just looking forward to what I get to do next…

When I talk to people about having this condition, they always ask me the same questions: ‘Doesn’t it scare you?’, ‘How did you change your life to fit around it?’ etc. The answers have changed since I was younger, but I’ve grown up with this, I don’t remember a time when I was unaware of it. I would say that I don’t take life for granted, but that I use my heart condition as an excuse to do so much more than I should, simply because I can. I am so indebted to CRY, not only for all the support they have given me and my family, but because of all the opportunities they have given me as well. I don’t know many other people who have been able to toss the coin at Wimbledon (in 2004, below) am so

Donations made in support of Phil’s “26” challenge are being used to fund CRY’s Research Fellow programme, which is essential to the services we offer.

For every £1 donated to fund a Research Fellow: • 50p will fund fast track screening services for families who

have been affected by young sudden cardiac death.

• 30p will fund medical research into young sudden

cardiac death.

• 20p will fund our national

screening programme for young

people (aged 14-35 years).

•

•

Conditions clinic at St George’s Hospital, London. At these fast-track clinics families can be seen within a few weeks of referral after the sudden death of a family member.

Publish at least 2 peer reviewed articles in leading journals and present their research at international conferences.

Support the screening of 4,000 people.

£100,000 will fund a Research Fellow for 2 years.

CRY funds doctors who choose to specialise in the field of inherited cardiac diseases, sudden cardiac death, screening and sports cardiology.

The research that they produce advances our understanding of conditions that can lead to sudden cardiac death.

Over 2 years, a CRY funded Research Fellow will: • Facilitate 500 fast-track referrals to the

CRY Inherited Cardiovascular Current CRY Research Fellows from left to right: Dr Hariharan Raju, Dr Navin Chandra and Dr Michael Papadakis.

www.c-r-y.org.uk

CRY update • Issue 51 • 25

Surgery Supporters

Network News

Back to track Tracey Duncan’s story

AA few weeks I received somenews. exciting news. to I had qualified compete at the few weeks agoago I received some exciting I had qualified compete at the UKto Athletic Championships in July this year.

For anyone, this in would greatyear. news.For Foranyone, me, it wasthis so much more that.

UK Athletic Championships Julybethis would bethan great news.

For me, it was so much more than that.

2004 I Iwas wasdiagnosed diagnosed with with right right ventricular ventricular outflow outflow tract tract InIn2004 tachycardia (RVOT).

Before this I was tachycardia (RVOT).

Before thisa pretty I wasgood a sportsperson: pretty good I had won international medals for 400m hurdles and the 4x400m sportsperson: I had won international medals for 400m hurrelay at junior level, including the European Juniors and World dles and the 4x400m relay at junior level, including the Student Games. I competed at the Commonwealth Games and European Juniors and World Student Games. I competed at European Championships in 2002. I was just breaking through the Commonwealth Games and European Championships in as a professional athlete. In 2004 I noticed a significant dip in 2002. I was just breaking through as a professional athlete. performances which were unexplainable by me or my coach.

testI noticed after blood test and stilldip no in answer.

I trained harder.

InBlood 2004 a significant performances which One unexplainable visit to Professor at the Blood Olympictest Medical were

by Greg me orWhyte my coach. after Institute (OMI) and the reason began to unfold.

The initial blood test and still no answer. I trained harder. One visittest to (ECG on Greg a treadmill) showed an irregular heartbeat – (OMI) really Professor Whyte at the Olympic Medical Institute fast beats followed by a very slow beat. I was quickly referred and the reason began to unfold. The initial test (ECG on a to another cardiologist, Dr Stephens, and told to stop training treadmill) showed an irregular heartbeat – really fast immediately. I was devastated. In 2005, after an eight month beats followed by a very slow beat. I was quickly referred to course of medication, I was referred for radio frequency ablation another cardiologist, Dr Stephens, and told to stop trainsurgery. It was successful. After months of monitoring I was told ing immediately. I was devastated.

I could resume sport. Not so easy. Physically the illness hadn’t

The course doctors were experiencedI was and Increated 2005,many aftercomplications. an eight month of medication, extremelyfor approachable.

Psychologically, I was damaged referred radio frequency ablation surgery.

It wasmuch sucmore deeply.

There were so many questions – if the trigger for cessful. After months of monitoring I was told I could RVOT couldn’t resume sport. be Notexplained, so easy. then how could I be sure it wouldn’t

Physically the illness hadn't created many complications.

The doctors were experienced and extremely approach26 • CRY update • Issue damaged 51 able.

Psychologically, I was much more deeply.

return? If If II really dodo I doI do now?

WithWith the support of return? reallyam amOK, OK,what what now? the supGreg hisand team that, physically, I could go Iback to port ofand Greg hisI realised team I realised that, physically, could track if I wanted to.

They would take care of my heart so I could go back to track if I wanted to. They would take care of my get back belonged.

It was a great feeling when I first heart so I where could Iget back where I belonged. stepped back on the track in 2006. I had no fitness whatsoever

Itbut wasthea body greateventually feeling when I first stepped back on the track remembers. With gentle encouragement inand 2006.

I had no fitness whatsoever butInthe slow progress I began to regain fitness.

Julybody 2007evenI had tually remembers.

With gentle encouragement and slow my first competition. I felt like I was flying. It was seven seconds progress I began to but regain fitness. slower than my best it didn’t matter. I was a new athlete now. to be So now I train Itwo three times InI was July happy 2007 just I had mythere. first competition. felttolike I was fly-a week (rather than the six-day week I used to do) and I have fun. ing. It was seven seconds slower than my best but it didbodyaand to warning If I am just moretotired n'tI respect matter.my I was newlisten athlete now. I signs. was happy be than usual on a training day or if I have a cold then I take the day there.

off – I have nothing to prove. Even if I couldn’t return to track, I

So I trainother two to three times a week (rather than thebody. sixdidnow discover activities that are less stressful on the day week I used toI am do)being and Ilooked have fun. respect my body and Most importantly, afterIby my cardiologist.

This listen to warning I am more usual a way he can worrysigns. about Ifmy heart and tired I am than able to relaxon and enjoy my I wasI take unable compete the training daysport. or if I Unfortunately, have a cold then thetoday off – I at have championships this year because of injury.

But that’s OK, I am so nothing to prove. Even if I couldn't return to track, I did thankful that I have overcome and physical discover other activities thatthe aremental less stressful on challenges the body. to compete again and to actually enjoy it.

Most importantly, I am being looked after by my cardiologist.

This way he can worry about my heart and I am able to relax and enjoy my sport.

Unfortunately, I was unable to compete at the championships this year because of injury. But that's OK, I am so www.c-r-y.org.uk

Surgery Supporters

Network News

An ace day out

James Doherty, his Wimbledon dreams by shattered by aheart devastating hearta James Doherty, whowho had had his Wimbledon dreams shattered a devastating condition, took starring role at world’s most famous tennis tournament. condition, took a starring role at world’s most famous tennis tournament.

A teenage tennis player who ‘died’ for 11 minutes, fulfilled his dreams of walking onto a Wimbledon delivering a lifeAndy saving electric shock to kickstart his Court – in the excellent company of Roger Federer and Roddick.

ACentre teenage tennisfinal player who ‘died’ for 11 minutes, fulfilled heart back into a healthy rhythm should it ever stop his dreams of walking onto a Wimbledon Centre Court beating again. You can read more about James’s story final in aged the 14, excellent of collapsing Roger Federer and James,–now stopped company breathing after while playing at www.c-r-y.org.uk/wimbledon_2009_coin.htm Andy tennis.Roddick.

At the time James was a county player and one of the UK’s most promising tennis14, players.

He has a heart disorder known as James, now aged stopped breathing after collapsing long QT syndrome (LQT) which alters the heart’s electrical pulsing while playing tennis. rhythm and can cause the heart to stop beating. Prior to his cardiac

At the time James was a county player and one of the UK's arrest, James’ condition had not been diagnosed. James was saved most promising tennis players. by the quick and professional actions of a spectator, Alan Percy,

He a heart known as long QTBrowne, syndrome (LQT) who,has together withdisorder James’ fitness trainer, Karen performed which the heart's electrical pulsing rhythm andthen can cardiac alters massage and mouth to mouth resuscitation.

James was cause the to at stop beating. cared for by heart the team Great Ormond Street Hospital for children

History Repeats

Another CRY SSNrepeats member, Laura John, took on the important History

role as official coin tosser in 2004 at the Wimbledon Men’s Another CRY SSN member, Laura John, took on the Singles Final. finaltosser was alsoinbetween important roleInterestingly as officialthis coin 2004 Roger at the Federer andMen's Andy Roddick yes, Federer went on to win Wimbledon Singlesand, Final. both finals! this final was also between Roger Federer Interestingly and Andy Roddick and, yes, Federer went on to win both finals!

and an implantable cardioverter defibrillator (ICD) was implanted.

Prior to his cardiac arrest, James' condition had not been The defibrillator is implanted in James’ chest wall. This is to prevent diagnosed.

James from having another cardiac arrest by delivering a life saving

James was saved by the quick and professional actions electric shock to kickstart his heart back into a healthy rhythm should of a spectator, Alan Percy, who, together with James’ fitit ever stop beating again. You can read more about James’s story at ness trainer, Karen Browne, performed cardiac massage www.c-r-y.org.uk/wimbledon_2009_coin.htm and mouth to mouth resuscitation. James was then cared for by the team at Great Ormond Street Hospital for children and an implantable cardioverter defibrillator (ICD) was implanted.

The defibrillator is implanted in James' chest wall. This is

www.c-r-y.org.uk to prevent James from having another cardiac arrest by

CRY update • Issue 51 • 27

Our

Fundraisers In Memory of Philip Abraham Mary Abraham forwarded a donation of £500 from Aerostructures Hamble Central Charities and £23 from the sale of additional Christmas cards.

In Memory of David Aitchison • Sarah Nutt took part in the Venice Marathon in October 2009 and raised funds totalling £456.

• Claire-Bridget McLaughlin took part in the Virgin London Marathon 2010 and raised £2,523.44.

In Memory of Amajad Ali and Jonny Bickers Matthew McSwiggan took part in the Virgin London Marathon 2010 and raised £1,719.50.

In Memory of Robert Allan • Leith Raw raised £350, via Virgin Money Giving website, in memory of Robert Allan.

• Watkins Syndicate Singapore Pte Ltd sent in a donation of £600 in respect of Matthew Allen’s London to Paris Bike Ride.

• Alseco Risk Management Services sent in a donation of £2,500 in memory of Robert. “Rob was a dear colleague who we miss keenly.” John Hasting-Bass, Chairman, Alseco Risk Management.

In Memory of Jane Allen • “We recently held a mini marathon in our school in aid of CRY. All the pupils of one of the houses in the school, Nelson House, ran for 10 minutes as far as they could around the school’s marked crosscountry circuit. Most of them, even the Year 3 pupils (aged 7 or 8), managed to complete at least 16 100-metre sectors, meaning they had to run at least a mile. This was particularly impressive on their part, as there are only 53 pupils in the house.”

Philip Allen sent in a donation of £600.60 in memory of his sister, Jane.

• Richard Hinkley raised £541.37, through online fundraising, in respect of the Brompton World Championship.

In Memory of Michael Anderson Kevin and Trudy Anderson sent in a donation of £1,768.

In Memory of Marcus Armstrong Anthony Armstrong raised £1,515 from Jacqueline Armstrong’s online fundraising page.

In Memory of Stuart Attridge • Lis Shrewsbury held a coffee morning in November and the Rotary Club of Reigate presented CRY County Representative, Rosemary Attridge, with a cheque for £580.

•

CRY County Representative, Rosemary Attridge gave a talk to Epsom Mayday Flower Club in the summer of 2009 when they chose CRY as their charity. Rosemary attended the AGM in January 2010 and they made a donation of £653.14.

• Reigate Rotary Club raised a further £400 at a recent quiz night.

• Rosemary Attridge, CRY County Representative, collected a cheque for £1,000 from Enterprise Rent-a-car in Epsom.

• Richard Feist took part in the Virgin London Marathon 2010 and raised £2,316.

In Memory of George, Iris and Ray Bagnall and Jack Garnett ‘Team Bagnall’ Raised £309 in sponsorship for the CRY Heart of London Bridges Walk 2009. ‘Team Bagnall’ were Carol Bagnall, Maureen Bagnall, John Garnett and Shirley Garnett.

In Memory of Andrew Ball Roy and Gill Ball forwarded a donation of £958.47. £458.47 from Alan Weavin and £500 from Hall & Warren Builders who sponsored the Christmas lights.

In Memory of Cecilia Barriga Stephen Haasz took part in the Virgin London Marathon 2010 and raised £2,096.

In Memory of Gideon Baws Team GB raised £7,655, through online fundraising, in respect of the Royal Parks Half Marathon. Team GB were Nick Goldsmith, Richard Kenworthy and Barnaby Newman.

In Memory of Gareth Beckett • ‘Team G-Man’ raised £1,677 in sponsorship for the CRY Heart of London Bridges Walk 2009.

‘Team G-Man’ were Karen Aldred, Hannah Beckett, Rhiannon Egan, Katie and Sandra Knapman, Richard and Robert Pikesley and Alan, Gemma, Sally and Samantha Walker.

• “Please find enclosed a cheque for £510 from Alan Walker.

It was part of the money we raised at a charity golf day in memory of my son Gareth Beckett who passed away 14 September from SADS.” Sandra Knapman & Family

28 • CRY update • Issue 51

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Our In Memory of Graeme ‘Tinka’ Bell Gemma Cannell forwarded donations totalling £650. £600 from West Denton Fire Station Social Club 165 Club and £50 from Throckley Under 9’s Football Club.

In Memory of Jemma Benjamin Dale Benjamin sent in a donation of £3,058.10 from the Memorial Hill Walk on 29th November 2009 in memory of his daughter, Jemma.

In

Memory

of

Violet Carter)

Laura

Bennett

was very interesting to see all the hounds and the huntsmen and women dressed in their gear. We then watched them go off for a day’s hunting.”

Charlotte Luckett (CRY Representative) forwarded a donation of £3,000.

(and

Mrs P Lawrence sent in a donation of £160 in respect of her mum, Violet, who recently passed away.

In Memory of Sarah Anne Bennett Carole Bennett sent in a donation of £5,000 for research at the CRY Centre of Cardiac Pathology.

In Memory of Kasia Ber “Please accept this cheque of £300 kindly donated to Kasia’s fund from Francis McGinty who made a bid for a football shirt.” Diane Ber

In Memory of David Berry • Laura Williams held a Chinese New Year event and raised £193.87 in memory of her friend, David.

• “On 16 March 2010 a group of 5 year 13 Business Studies students organised a fashion show in memory of their friend and student David Berry who sadly passed away last year, and also to raise money for CRY. The Fashion Show was a huge success, the first of its kind at Gateacre and attended by over 120 people.

A range of fashionable clothing was modelled by year 13 students and all clothing was available for sale at the end of the show. Gifts were donated for raffling and the event was also kindly sponsored by Pantheon Property Services.

The event raised £800.” Tracy Cleland, Head of Business Studies, Gateacre Comprehensive School.

In Memory of Warren Berry Marion May, HR Assistant, Lucite International, sent in a donation of £135.

In Memory of Robyn Bickell The Tamar Pleasure Ride - 25th October 2009. “We collected the cheque on 27th December at Mr Bickell’s Hunt Gathering, which

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Fundraisers

Left to right: Brenda and Charlotte Luckett (CRY County Representative), Michael Bickell and Amanda Denny riding Harvey and Willow respectively, and Susie Murray representing SADS. In Memory of

Steven Bicker

June Fisk sent in a sponsorship donation of £130 for her son, Tom Fisk, who took part in the Great North Run.

In Memory of Max Biles • We have received a funeral donation of £1,285.34 in memory of the late Max Biles.

• Mrs E Biles sent in a donation of £175.

• “Please find enclosed cheques to the sum of £2,465 raised at a lunch in memory of Max held at the North Dorset Rugby Club”. Shireen Brickell.

In Memory of Matthew Billing “Last November some friends and I held a fundraising event in aid of the BBC Children in Need Appeal, and CRY. We were keen to make a donation to CRY in memory of Matthew Billing, the 18-year-old son of good friends who died the previous year from teenage sudden death syndrome.” Helen Griffiths, Joint event organiser, sent in a donation of £1,600.

In Memory of Dallas Bishop Mandy Kuhn raised £1,665.26, through online fundraising, in respect of the Dallas Bishop Memorial Cricket Festival.

In Memory of Mathew Blease • Karen Blease forwarded a donation of £4,000 from Kelly Ames (Sir Frederic Osborn pupil) and her father Michael Ames (Panshanger Golf Club Captain) on behalf of all the members at the club.

They did various things to raise this money including the traditional Captain’s Day, where everyone (not just members) is invited along to participate in a round of golf with drinks and food to follow.” Karen Blease • In memory of Matthew Pearson and Mat Blease. “On 16th November 2009 Sir Frederic Osborn School held a fireworks

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event in memory of students Matthew Pearson and Mat Blease, who both tragically died due to heart conditions within the last two years. The event was incredibly precious to all who attended and was a special way to remember our young men. A lot of thought was put in by the professional fireworks display company, ‘Dragon Dynasty Pyrotechnics’, on what the actual show should look like and the colours that should be incorporated; I think all who attended will agree that the display was perfect. So in honour of the work you do in raising awareness of Cardiac Risk in the Young and in memory of Matthew and Mat we are pleased to enclose a cheque for £392.42.” Miss Kiera Berditch & Miss Hayley Marsh, form tutors of Matthew and Mat.

between Saltford and Keynsham and then progressed to the main event which was Saltford seniors v Keynsham U18s.

It was fitting that both teams played against each other as the match itself showed a display of determination and spirit that Jack loved. There were many raffle prizes donated including some by both Bristol City and Bristol Rovers and the local newspaper Bristol Evening Post. Keynsham ‘Week In’ promoted and reported on the match. Local support and volunteers were amazing and funds collected from a variety of sources including sale of T-shirts and refreshments. Saltford were the victors and the Cup is proudly displayed at the local

• Doug Stoke raised £187, through online fundraising, from the Golf Challenge.

• Karen, Mark and Stephen Blease, Jennifer Bashford, Amanda Bassett, Karen Ford, Claude Gordon, Chris Loft, Elizabeth Nolan and Hayley Sims raised £591 in sponsorship for the CRY Heart of London Bridges Walk 2009.

• Mark Blease took part in the Virgin London Marathon 2010 and raised £2,389.44.

In Memory of Graeme Blenkinsop • “I am very pleased to enclose a cheque for £114. This money includes donations from some of our work colleagues and money in lieu of sending Christmas cards to our close family, friends and work colleagues.” Mrs Jan Blenkinsop

• Lesley Ann Bryant sent in a donation of £100 in memory of Graeme, who would have celebrated his 25th birthday on 18 March.

In Memory of Jack Boulton • David Boulton held a tribute match on 22nd October 2009 - Keynsham v Saltford, and sent in a further donation of £456.50, making a total raised of £7,872. “Jack was a very keen footballer and had played in the youth teams for both Saltford and Keynsham since a very young age and had been a member of the senior squad for Saltford over the last season. He had a reputation for being hard working and determined and never gave up until the final whistle was blown. Over the years he has scored many goals, many of those memorable enough to turn a match around. The night of 22nd October kicked off with a mini soccer game

30 • CRY update • Issue 51

club with other pictures from the event. We are grateful to all sponsors (including Rotork plc as main sponsor) and supporters who made it a great success. Jack would be very proud and truly humbled.” Dave, June and Lucy.

• “Please accept a cheque for £649.55 which we raised on

behalf of the Boulton family. We held a charity bag packing session on Saturday 13th March at the Co-operative Supermarket, Keynsham. Thirty members of the club, senior and junior members, gave two hours of their time to help pack bags, wheel trolleys and advertise CRY. Sadly, one of our most talented junior cricketers, Jack Boulton, collapsed at a football training session during the evening of 19th August 2009. Jack was also a talented footballer and golfer who was University bound. The club and local community were shocked

by Jack’s death; he was a very popular lad, who is greatly missed.” K Bancroft.

In Memory of Ian Bowen • Maralyn and Lil held at tombola stall at Morrison’s Supermarket on 18 December 2009 and raised £205.

Maralyn Bowen forwarded a donation of £500 • from the Shift Engineering Team at Redcar Corus Works.

• Maralyn Bowen forwarded a donation of £105 from the charity bottle on the bar at the Pig & Whistle Pub.

In Memory of Margaret (Maggie) Brewer We have received a funeral donation of £275 in memory of the late Margaret (Maggie) Brewer.

In Memory of Katrina Brown • Marian Herbert took part in the Virgin London

Marathon 2010 and raised £4,655.20.

• Robert Mullane took part in the Virgin London Marathon 2010 and raised £4,237.21.

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Fundraisers

was a really memorable and enjoyable evening. Clive also came to the hospital on Tuesday 2nd February, for presentation of the cheque to me.” Angela Butler sent in a donation of £321.

•

CRY Patron Bill Neely took part in the Virgin London Marathon 2010 and raised £3,738.

• Angela Butler forwarded a donation of £200 given to Dr James Byrne, Consultant Dermatologist, University Hospital of North Staffs, from a grateful patient and £25 from her friend, Mrs Lynn Bennett in respect of the screening of her son.

In Memory of Alex Buckler “I am enclosing a cheque for £250 being money raised at a band concert which was held in Wanstrow Parish Church recently.” Owen Hillier, Treasurer to the Parochial Church Council of Postlebury.

In Memory of Tom Burton Jim and Tim Burton took part in the Virgin London Marathon 2010 and raised £3,345.32.

In Memory of Nathan Butler • “Please find cheques enclosed totalling £1,318.90 for Nathan’s Fund. £52.90 was raised by our friends Penny and Alastair who hold regular Book Club sales and always donate the profit to CRY. The other £1,260 has been donated by friends at Porthill Park Cricket Club.

In September 2009, 12 members of Porthill Park Cricket Club, Newcastle-underLyme undertook the 3 peaks challenge – climbing Ben Nevis, Skar Fell and Snowdon. They all found the challenge extremely hard but relished the opportunity of raising the money for CRY in memory of Nathan Butler who was a much loved member of the cricket club. The enclosed photo is of the group at the top of Snowdon when they’d almost completed their challenge.”

Angela Butler

• “This money was raised by the staff at the Central Outpatients Department at the University Hospital of North Staffordshire. Janet Hagan, Paediatric Clinic Manager and Graham Wood, Head Porter, organised a Quiz Night at Newcastle & Hartshill Cricket Club. The event was supported by CRY patron Clive Clarke and

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• “This cheque has been forwarded to me by the Bilston Soroptomists Ladies and has been donated by Mr M Spencer, a colleague of one of their members via a company called Pometon Limited.” Angela Butler forwarded a donation of £500.

• “In honour of Nathan’s 21st birthday we recently held a screening weekend 27th & 28th March and a charity disco on 1st April, which was his actual birthday.

The screening weekend got off to a bit of a rocky start on the Friday evening when Tony and the crew broke down on the M6 toll and had to travel in a recovery vehicle to the venue at Porthill Park Cricket Club. This meant that they didn’t arrive until 10.30 p.m. and had to be up for an early start to set up at 7 a.m. The event was a huge success and everyone praised the smooth organisation and pleasant atmosphere of all the CRY staff. BBC Midlands Today came to do an article on the event and when this was broadcast on TV they said that 10 people had been referred on for further advice/treatment this made all the hard work of fundraising and organising the weekend very worthwhile to think that hopefully we’ve helped towards preventing other families from suffering as we are.

Then on the Thursday evening, 1st April, we held a charity disco in honour of Nath’s 21st birthday. This was attended by 150 of Nath’s family and friends and was a fantastic evening which went on until the small hours!

We didn’t plan these two events as fundraising events but during both we received donations amounting to £964 so thanks to everyone for their support once again!” Angela Butler

In Memory of Steven Chalk ‘Team Chalk’ raised £1,564.50 in sponsorship for the CRY Heart of London Bridges Walk 2009. ‘Team Chalk’ were Lee and Pauline Barge, Adam and Vicky Chalk, Jacqueline Goodchild, Nicky Hanks, Michele Neep and Ros Tainsh.

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In Memory of Haris Charalambous “My name is Elena Charalambous and in October 2006 my brother, Haris, passed away suddenly from an aortic dissection, aged 21. He had earned a basketball scholarship to go to the University of Toledo in the USA and was training with his basketball team. He was very different in stature to his immediate family and had undiagnosed Marfans syndrome. Following his death, his parents and former basketball coaches set up a memorial fund

In Memory of Mark Law Hing Choy David Malcolm raised £373, through online fundraising, in respect of the Hadrian’s Wall Walk.

In Memory of Tom Clabburn • More than 130 members of Team Tom II raised

£8,561 in sponsorship for the CRY Heart of

London Bridges Walk 2009.

• Paul Clabburn sent in a donation of £150 which was presented to him by his colleagues upon his retirement from the BBC on 31 March 2010.

In Memory of Matthew Clark Sophie Clark completed the Run to the Beat Half Marathon 2009 and raised £280, through online fundraising.

In Memory of Louisa Clayton Carl Clayton took part in the Virgin London Marathon 2010 and raised £1,809.

under the umbrella of Greater Manchester Youth Basketball, which organises an annual international boys’ basketball tournament in Haris’ memory, in December of each year. In 2009, the local community held a fundraiser at the GMYBC/ Amaechi Basketball Centre to raise awareness of Marfans Syndrome and Cardiac Risk in the Young. There was information about Marfans Syndrome and common heart conditions on display, as well as various fun activities such as face painting, food stalls and a penalty shoot-out. For 2009 The Haris Memorial Fund would like to make a donation of £500 to CRY. Please accept this donation in my brother’s memory.” Elena Charalambous In Memory of Mrs Patricia Corder Charman We have received a donation of £112.50, in lieu of floral tributes, for the late Mrs Patricia Corder Charman.

In Memory of Josephine Chatterton Steve Chatterton raised £1,530 from his online fundraising page In Memory of Anthony Child “Our good friends Phil and Michael Patridge ran 13 miles at the Eden Project in Cornwall.” Angela and Jack Child sent in a donation of £1,300 in memory of Anthony.

32 • CRY update • Issue 51

In Memory of David Cochrane • Ray Newton forwarded a CAF cheque for £441, making the total amount raised from the sponsored walk in 2009 to £8,763.96.

• Ray Newton, Lodge Hopetoun St John, sent in a donation of £250.

In Memory of Jane Maxine Coe (nee Armstrong) Ann Armstrong sent in a donation of £120.

In Memory of Adam Connolly

• Edward Blad took part in the Virgin London Marathon 2010 and raised £2,172.50.

• Andrew Jackson took part in the Virgin London Marathon 2010 and raised £1,763.

• Andrew Tomlinson took part in the Virgin London Marathon 2010 and raised £2,172.50.

In Memory of Glen Cooper Belinda Sumner raised £545, through online fundraising, in respect of the Bupa Yorkshire Run. In Memory of Matthew Cooper Alistair Macfarlane raised £3,913.29, through online fundraising, in respect of the CRY - Cycle Mexico.

In Memory of Peter Cox • Craig Barrett raised £135, through online fundraising, in respect of the Great South Run 2009.

• “This money was raised at last year’s Fairy Festival in May and the Angel Festival in December.” Jill Din, Petersfield Angel & Fairy Festivals, sent in a donation of £204.

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Our

In Memory of Martyn Dobson Chris Jones raised £800, through online fundraising, in respect of the Tees Pride 10K 2009.

In Memory of Harry Cutmore Wendy and Jason Cutmore and friends held a party in memory of Harry, who died on 23 February 2009 from Sudden Infant Death Syndrome and raised £147.

In Memory of Andrew Dale Jessica Dale raised £240, through online fundraising, in respect of the EDF Energy Birmingham Half Marathon 2009.

In Memory of Neil Darby Maxine Karim took part in the Loch Ness Marathon and raised £265 for CRY. In Memory of Carl Dawson • Mr & Mrs C Dawson sent in a donation of £2,000 from the Carl Dawson Memorial Fund.

• Jill Fellows and friends held a Quiz Night in memory of Carl Dawson and raised £500.75. “On 6 February, we held a quiz in Eastling Village Hall in memory of a young man who died in our village a couple of years ago.

He was just 18 years of age, his name was Carl Dawson. The quiz was our way of honouring him as a fine a young man.

In

Memory

of

Michael Dobson

Martyn

and

“Please find enclosed a cheque for £400 in lieu of floral tributes at the funeral of my husband Michael Dobson, who passed away on 26th December 2009 due to vasculitis in the lungs and kidneys and Leukaemia. I have chosen CRY for the donation because our son Martyn Dobson passed away on 17th December 2008, aged 30 years; due to cardiac arrhythmia resulting from cardiac scarring that had occurred some years earlier. He was cycling at the time in Richmond Park in London. Martyn was a keen and fit cyclist, having won many events on road and track, my husband and I supporting him all the way. I feel it is right to donate the flower money to CRY to go towards the good work in monitoring young people for cardiac problems and support to bereaved families like ours.” Mrs L A Dobson

Nine teams got together and battled for the pride of the village. Questions were written by Caroline Ramshaw and Jill Fellows (pictured); Steve Fellows and Jacquie Henry marked answers, folded raffle tickets and collected money.

Martyn Dobson with girlfriend Anna

Michael Dobson and granddaughter Chloe

In Memory of Adam Donnelly • Cheryl Morgan raised a further £285, through

online fundraising, in respect of the Adidas

Women’s 5K Challenge 2009. This makes a

total raised of £455.

Questions covered all subjects from riddles to sport, food to nature.”

Caroline Ramshaw & Jill Fellows In Memory of Neil Desai Bipin, Kokila, Minaxi, Ravi, Samir and Urmila Desai raised £640 in sponsorship for the CRY Heart of London Bridges Walk 2009.

Fundraisers

•

Julie Donnelly sent in a donation of £200 from a CRY stall that her mother and aunt run at a weekly boot sale in Anglesey, North Wales.

• Julie, Jed and Sian Donnelly raised just under £100 in

sponsorship for the CRY Heart of London Bridges Walk 2009.

In Memory of John Lawrence Dick “I have pleasure in enclosing a donation of £300 which I raised leading a walk over some of the London Bridges. I organised it with the City of London Historical Society.” Zoe and Malcolm Dick In Memory of Christopher Dixon • Karen Dixon sent in a final donation of £160

from online fundraising.

• Aimee Norman sent in donations totalling £425 after completing the Swanage to Corfe Castle sponsored walk in August 2009.

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In Memory of Stephen Donovan “The money was raised by customer raffles in Freeman’s Cash & Carry in Washington.” Margie Bell sent in a donation of £150.

In Memory of Adam Drawbridge ‘Team Adam’ raised £3,602.30 in sponsorship for the CRY Heart of London Bridges Walk 2009. ‘Team Adam’ were James, Les and Sarah Drawbridge, Shirley and Claire Blackman, Debbie Fenn, Sue Freeman, Guy Harrison, Barbara and Mark Simons, James and Kate Skinner and Phil and Sheila Tinsley.

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In Memory of Rebecca Louise Duxbury Ray Duxbury sent in a donation of £720 from the Charity Evening held at the Havelock Inn in memory of Rebecca. The annual event was attended by family and friends. “The event was organised by Becky’s mum (Vanessa) and Vanessa’s sister Susan Entwistle

• We have received a donation of £10,777.46 in respect of CRY’s share of the Just Giving donations for the Haslemere Rugby Football Club’s Three Peaks Challenge. This makes the total amount raised £15,134.96.

• John, Yvonne and Rose Bailey sent in a donation of £250.

• “On the anniversary of Seb English’s death, a group of his

friends from Lord Wandsworth College, Amesbury and the Haslemere Rugby team, got together at Pizza Express, as they do every year and raised money for CRY. I enclose a cheque for £105.” Tony Prigge

along with the manager from the Havelock Inn and was held at the Havelock Inn, Blackburn.

The event, albeit arranged at short notice, was a success and raised £720. The event was attended by family and friends and it is hoped that this will become an annual event and in time run alongside other fund raising events.”

Ray Duxbury In Memory of John Aidan Eastwood John and Gwen Eastwood sent in a donation of £8,000 from the John Aidan Eastwood Memorial Fund.

In Memory of David Elliot Bow, Durham School raised £200.28, from their ‘Home Clothes Day’. This donation was forwarded to us by Ray and Eileen Elliot.

In Memory of Sebastian English • Mr & Mrs G Owens sent in a Christmas

donation of £100 in memory of their great

nephew, Sebastian.

•

Adrian Jones sent in donations totalling £1,075 in respect of the Haslemere RFC Three Peaks Challenge. £1,000 was donated by Schroders, £25 from Ms K Rogers and £50 from Mr J Standen.

• “Please find enclosed a cheque for £1,171.76. This

represents sponsorship money collected after our school cycle tour earlier this year. We cycled from Blackpool Tower to Scarborough Fair via the Lake District. This was a distance of 370 miles with 11,000 feet of climbing. This was achieved in 6 days by a team of 8 cyclists and a support crew member.

Logistics: David Machin, Staff: Richard Kimber, Pupils: Nick Cullen, Tommy Garland, Max Thomas, Jack Newman, Jason Gordon, Jonny Dow and Ollie Gower. A pupil of our college (Seb English) died tragically young from a heart condition several years ago, whilst playing rugby. Since then your charity and what you all achieve has been present in the back of our minds and we will continue to support for as long as I can still cycle up hills!” Richard Kimber

• CRY Patron Simon Halliday

took part in the Virgin London Marathon 2010 and raised £3,655.

In Memory of Clare Everett-Allen Cynthia Everett-Allen, her husband and friends, put on a concert at the church and raised £261.

In Memory of Therese Field Tara Gore sent in a donation of £200 from the Carol Concert in memory of Therese.

Mick Gore sent in a donation of £363.

In Memory of Nolan Foley “Please find enclosed a donation totalling £222 on the occasion of the death of Nolan’s uncle, Michael Grant.

Catherine Grant collected the various donations in tribute to Michael at the funeral, and wanted to donate them in memory of her husband to Nolan’s memorial fund at CRY.” David Foley In Memory of Andy Forbes

• Laurie Horwood raised a further £1,055, through online fundraising, in respect of the Royal Parks Half Marathon. This makes a total raised of £1,265.

• Paul Hammett took part in the Virgin London Marathon 2010 and raised £4,022.76.

In Memory of Kieran Formby • ‘Team Kieran’ raised £3,146.17 in sponsorship for the CRY Heart of London Bridges Walk 2009. ‘Team Kieran’ were Katie Carter, Peter Mills, Caroline, Hannah, John and Jonathan Barnes, Edward and Jane Clarke, Catherine, Chloe, Dee, Geoff, Liz, Richard and Sinead Formby, Daniel, Liz and Victoria Hiscock, Leanne and Margaret Mills and Nick Pirie.

• Jack Bowen took part in the Virgin London Marathon 2010 and raised £1,280.

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Our In Memory of Max French Claire Ludgate took part in the Lincoln 10K and raised £142 in memory of Max. In Memory of Rhian Nadine Fry Catherine Perry, Treasurer of Young Surrey Lawyers, sent in a donation of £303 from the proceeds of a quiz night they held on 19 February 2010.

Fundraisers

• “It was our Golden Wedding Anniversary on 12th March and

instead of presents we requested donations for your charity in memory of our Great Grandson Reece Goodman.” Mary and Fred Hancock sent in a donation of £312.

In Memory of Matt Gadsby Sharon and Michael Love took part in the Virgin London Marathon 2010 and raised £4,109.86.

In Memory of Mark Gallacher Emma Ralston took part in the Virgin London Marathon 2010 and raised £2,114.25.

In Memory of Lauren Gallagher • Blanche Gallagher sent in a donation of £30

from staff at the local Irish primary school and

£102 from Centra store. Total donation £132.

•

Blanche Gallagher sent in a donation of £130 from the CRY collection boxes in Centra, Ballymagorry, Strabane.

• Blanche Gallagher sent in two donations; £100 from the CRY box in Centra Stores, Ballymagorry, and £195 from Gaelscoil Lit Dhochartaigh Easter Egg Draw.

In Memory of Jaimie Gault Margaret Gault sent in a donation of £160.75 from the Craft Fair and Christmas cards and £555 from the Ladies section of Masserene Golf Club. Total donation £715.75.

In Memory of David Gellet Chris Speed took part in the Virgin London Marathon 2010 and raised £2,410.

In Memory of Reece Goodman • “Enclosed is a cheque for £600 in memory of our gorgeous son Reece Goodman who passed away on 2nd October 2006. This was raised by friends and colleagues taking part in a sponsored rugby match, my friend Michael Harrison also took part in the Godiva Half Marathon in Coventry. Reece had dilated cardiomyopathy which went undiagnosed for 10 months. He passed away suddenly just two months later at the age of 1 year, one week. We have all been left completely devastated by this and three years on we are still coming to terms with his loss. We will continue to raise money for CRY for many years to come as we feel very strongly that one day there will be a cure.” Lara Goodman (Reece’s mummy)

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Mary and Fred Hancock at the fun run event at the Ricoh Stadium for CRY In Memory of Oliver Griffin and Thomas Griffin Owen Griffin sent in a donation of £1,270, in lieu of floral tributes, in memory of his father, Thomas Griffin. He sent in a further donation of £1,000, as a bequest from his father’s will.

In Memory of Ena Gunstone We have received a donation of £337 in lieu of floral tributes in memory of Ena Gunstone.

In Memory of Leanne Marie Haddrell Mrs Mary Haddrell held a Posh Frock & Black Tie Do on 20th February and raised £1,853.01.

“February 17th 2010 would have been Leanne’s 23rd Birthday - our 2nd birthday without our beautiful daughter and sister to David with us.

Since losing Leanne we have held several fundraising events, as she was such a lover of sport these tended to be different sporting activities, although she loved her sport she also loved dressing up in a posh frock and having fun partying, so we decided that on February 20th we would hold a celebration for her birthday being Leanne’s Posh Frock and Black Tie do.

We contacted one of our local pubs, which Leanne used to pop into with her friends during their final year of school before going to University and asked them to help us with our idea which they were only too pleased to do. We were told the venue would hold 70 guests as we were planning to hold a 3 course meal, auction, raffle and disco. Once the news of this got around we were sold out within 72 hours, ‘Oh well it’s definitely going to happen then’ we all agreed.

So many people wanted to come we had to have a list of names on standby just in case we had anyone drop out. People came from all over, there was Leanne’s old school and University friends, our friends, David and Laura’s friends and their beautiful baby daughter Phoebe Leanne (Leanne’s 1st niece, only 7 months old) came along too, local business people, local councillors and work

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colleagues, we had people travelling from Jersey, Somerset and Wales to mention but a few, WOW, so many people still want to remember our daughter and support one another, bless them.

We had a friend of a friend offer to be the Auctioneer (Nico was fantastic at this, very funny), one of Leanne’s old school friends provided us with the disco - thanks to Craig for his generosity and help with this. We had people donating items for the auction and raffle that we had never met to whom we are eternally grateful, so many kind and generous people around really does instil my faith in human kindness.

The night was a fantastic success in which we raised in excess of £1850.00 for CRY, we had a fantastic meal which included some of Leanne’s favourite dishes, a very funny auction and raffle and a very noisy disco but hey we ALL HAD FUN and remembered our beautiful precious daughter, sister and friend Leanne.

I am sure Leanne was there with us partying as she always did xx” Mary Haddrell (Leanne’s mum).

In Memory of James Haggerty Jackie Haggerty sent in donations totalling £649.69 in memory of James. £40 from A J Dennis, £25 from PD & LK Bendon, £539.69 from Bexhill High School and £45 from a ‘Guess the Weight of the Baby competition’ at Jackie’s workplace as their Manager left to have a baby.

In Memory of Harvey Hague-Armitage Mrs Julie Morley sent in a donation of £340 from the HSBC Walsall’s Branch Sponsored Walk, plus a Match Giving donation of £340 from HSBC making a total amount of £680.

In Memory of David Hamilton • “Please find enclosed donations totalling £389 in respect of the Silverstone Half Marathon on 14th March, run by Lolo Leyenda in memory of my son, David Hamilton.” Sarah Zouiter

• Rachel Hamilton raised just under £100 in sponsorship for the CRY Heart of London Bridges Walk 2009.

In Memory of Mrs Sheila Harding We have received a donation of £675, in lieu of floral tributes, for the late Mrs Sheila Harding, who passed away in February 2010.

In Memory of Graham Harrison • Richard and Christine Iveson took part in the Great North Run and raised £2,000 including money raised from the Hog Roast. They also sent in a further donation of £56 raised from the local scouts group.

• “It is now almost two years since the sudden, and without

warning, death of my nephew, Graham. Graham would have had his 21st Birthday on 16th February, 2010. In his memory a Valentine Dance was held at the Driffield Town Cricket & Recreation Club where £660 was raised and a General Knowledge Quiz evening raised £240, totalling £900. I am proud to continue to raise monies to support CRY’s main aims - to save young people’s lives and support and help those who are affected - in memory of a much loved son, brother, nephew and cousin. He is sorely missed by us all.” Pam Woodcock sent in donations totalling £900. She also sent in a further donation of £80 which represents a Christmas card collection at McCain’s Foods.

In Memory of Ryan Harrison Gill Engerfield, Chequers, sent in a donation on £455, from customers in memory of Ryan, who passed away in October 2009, from an undiagnosed heart condition.

In Memory of David Harrop • Trish Calthorpe raised £475, through online fundraising, in respect of the London to Paris Cycle Ride.

• Jennifer Harrop raised £1,750, through online fundraising, in respect of the Kilimanjaro Trek 2009.

• Aoife McMahon took part in the Virgin London Marathon 2010 and raised £2,325.44.

In Memory of Colin Hart “We are sending you a donation of £200 in memory of our son, Colin, who suddenly passed away in his sleep, aged 24, on 1st July 2001.” Brian and Margaret Hart

36 • CRY update • Issue 51

www.c-r-y.org.uk

Our In Memory of

Andrew Hartlebury

Kerry Bamber r e c e n t l y c e l e b r a t e d her 40th birthday and raised £752.50 at her party in memory of Andrew.

In Memory of Jennifer Hawes “I’m sending you a cheque for £100 on behalf of BT, who are a client of ours. BT recently ran a photography competition for its employees, and the prize was a donation of £100 to a charity of the winner’s choice. The winning photographer was Alan Barnes, whose photo featured his colleague Dave Hawes. Dave’s niece Jennifer died from a heart attack when she was very young and so, in her memory, Alan and Dave decided the £100 should go to Cardiac Risk in the Young.” Martin Hennessey.

In Memory of

Fundraisers

Laura Hillier

• Mrs J Tildesley sent in a donation of £100.

• Tony and Joan Hillier sent in cheques totalling £305.

In Memory of Andrew Holcombe Barry Holcombe took part in the Virgin London Marathon 2010 and raised £2,055.

In Memory of David Holmes Chris Barnes took part in the Virgin London Marathon 2010 and raised £2,299.

In Memory of Adrian Hookham S Hookham sent in a donation of £100.

In Memory of Jonathan Hooper • Diane, Peter, Simon and Stephanie Hooper, Jennifer Anthony, David and Doreen Jolly and Richard Mayou raised £1,222 in sponsorship for the CRY Heart of London Bridges Walk 2009.

In Memory of Kallista Lily-Ann Heavey • Thomas Healey raised a further £1,623.45,

through online fundraising.

• Richard Shand took part in the Virgin London Marathon 2010

• We have received donations totalling £398.50. £50 from the Sneyd Green Community Hall Monday Dance Class, £20 from Mrs Jean Edwards, chair of Governor’s at Mill Hill Primary School and £328.50 from the staff and pupils of Richard Heathcote Community Primary School.

In Memory of Nina Horndorf Dearsley Andrew Dearsley took part in the Great North Run and raised £641.02.

In Memory of Gareth Huw Hemmings “My donation is in memory of my dear friend Gareth Huw Hemmings who sadly passed away on 6th March 2009.” Ed Mitchard sent in a donation of £228.

In Memory of Polly Hughes • “Please find enclosed two cheques totalling £7,070 which we raised over 2 years at our Polo Ball. I am secretary of the Polo Club and sister to Polly Hughes who died in 2006. In June 2008 and 2009 the Cambridge & Newmarket Polo Club hosted a Charity Ball in aid of CRY. The Ball is organised by myself, Sophie Hughes and my boyfriend Thomas Clayton each year and attracts around 450 guests. Each year we hold an auction at the Ball, the proceeds from which are donated to different charities of choice. I chose CRY to donate to over the past two years as my sister Polly Hughes died in March 2006 of cardiomyopathy and since her death many people have done so much to raise funds in her memory for CRY. During the evenings we had a champagne reception, dinner, a band and a DJ and over dinner, the auction began. Among the auction prizes in 2008 were a weekend of fox hunting in Ireland, a Saville Row tailor-made suit, a year’s supply of chocolate and a polo holiday in Argentina. In 2009 a few of the prizes including a week’s stay in the South of France, a day’s shooting for 9 guns, a Dermatological treatment of choice in Poland and a week’s skiing in Verbier. We have around 18 polo teams playing over the weekend of the ball each year and have had fantastic weather these past two years. The ball has become a very popular social event in the

In Memory of Margaret Hickman “This money is donated in memory of my mother, Margaret who recently died (02/03/10) from a heart condition. The reason we chose your charity was because two family members ran the marathon in 2009 in memory of their son who died at the age of 15 from a heart condition. The money they raised went to CRY. My mum was 59 when she died but we know she would want to help the younger generation.” Mandy Hickman sent in a donation of £300.

In Memory of Greg Highwood-Mack Paul Lynch took part in the Virgin London Marathon 2010 and raised £1,940.40.

In Memory of Andy Hill John Adams raised a further £270, through online fundraising, in respect of the Great North Swim. This makes a total raised of £658.

www.c-r-y.org.uk

and raised £2,336.20.

CRY update • Issue 51 • 37

Our

Fundraisers

Cambridge and Newmarket area and we are very grateful for the warmth and support from everyone.” Sophie Hughes

• “Please find enclosed a cheque for £220. The money

In Memory of Nick Jarram and Tony Wells Susie Thomas raised £180, through online fundraising, in respect of the Coventry Half Marathon.

was raised at a shoot sweep, where all the guns put money in a pot and guess how many birds were shot that day. The man who won the sweep, Andrew Lodowski, handed the cash to a friend of mine to give me for CRY. He had been aware of CRY since he attended the Polo Ball in the summer which my other daughter, Sophie Hughes, organises each year and where the auction was to raise money for CRY.” Julia Hughes

In Memory of Philip Jefferies Cathy Jefferies sent in a donation of £4,600 in memory of her husband Philip, raised through various fundraising events, including the Yorkshireman Off-Road Marathon 2008.

• George Hughes took part in the Virgin London Marathon 2010:

• “I ran the London Marathon this year on behalf of CRY in memory of my sister Pollyanna Hughes who died on 1st March 2006 of Dilated Cardiomyopathy.

It was sudden and completely unexpected / undiagnosed.

She was 22 years old and studying film and television at Leeds University following in my footsteps as a TV Producer.

I had some serious trouble getting back to run the Marathon after getting stuck out in Bangkok, Thailand due to the volcanic ash cloud.

I had been out in Cambodia setting up filming for a programme on Channel 4 with Gordon Ramsay (Gordon Ramsay’s Great Escape). I only managed to get a flight in the 11th hour that got me in to London the night before at 9.30pm.

Naturally I was terribly jetlagged and the race proved a real struggle despite heavy training. I did however have the pleasure of overtaking Gordon at around mile 9 and giving him a bit of encouragement before speeding off.

He, unfortunately, had to drop out due to injury just a few miles later.

I fortunately completed the race in 3 hours 55 minutes and raised £10,187.01 for CRY.”

George Hughes

In Memory of Nina Jelen • Paddy Jelen raised a further £3,568.23,

through online fundraising, in respect of the

Royal Parks Half Marathon. Total raised

£3,850.23.

•

Carole Jones sold plants outside her house during the summer and raised £1,577.22.

In Memory of Howard Jennings “Please find enclosed a cheque for £805 raised from our charity Golf Tournament held on 7th September 2009 in memory of Howard Jennings. This includes the sum of £400 generously donated by Becker Sliding Partitions. The event was much smaller this year with only 16 golfers but was as incredibly successful as ever.” Keely Ashley In

In Memory of John Ibbotson Mrs S Ibbotson sent in a donation of £500 from the Fish & Hits Evening in memory of John.

•

In Memory of Nick Jarram Rayatt • Rehmat

raised £674,

through online

fundraising, in respect of the skydive.

The Coventry Tyrone Association sent in a donation of £300 in respect of Nikki Halliday’s web page.

38 • CRY update • Issue 51

Memory

of

James Johnsen

The family of James Johnsen, who passed away, on 28th November 2009, aged 35, sent in a donation of £620 in his memory.

Leon and James Johnsen

In Memory of Lisa Johnson Gareth Johnson has raised £730, so far, in sponsorship for the CRY Heart of London Bridges Walk 2009. Gareth is still fundraising for this event.

www.c-r-y.org.uk

Our In Memory of Barry Johnston “Please find enclosed two cheques totalling £628 for your charity.

I am a District Operations Manager for William Hill Bookmakers.

My district recently challenged another to a football match to raise funds for your good cause. This is a subject close to us as one of our manageresses lost her son due to the condition (Barry Johnston.) I am sure you will put this to good use.” Andrew Davidson In Memory of Caroline Johnstone • Malcolm Hooker took part in the Dublin Marathon 2009 and raised a total of £221.40.

• Victoria Haimes raised £985, through online

fundraising, in respect of the Royal Parks Half Marathon 2009. Alison and Victoria Haimes also set up a joint online fundraising page for the Royal Parks Half Marathon and raised £670.

• Simon Limmer raised £585, through online fundraising, in respect of the Snowdonia Marathon.

Fundraisers

In Memory of Robert Lancaster • Kerry Lagden held an Aerobathon and raffle at Foxhill’s Country Club and raised £1,750.

• James Lancaster sent in a donation of £22,000 from the Clay Pigeon Shoot. The donation was made up as follows: £4,000 from Martin’s Retail Group, £1,000 from G. Watts, £1,600 from D.E. Collier, £1,500 from D.W. Symondson, plus £14,000 from Robert’s Charity Fund. This donation has been used for the purchase of a new CRY van.

• James Lancaster sent in a donation of £225.

In Memory of Rachael Langley Carol and Christakis Andrea raised £325 in sponsorship for the CRY Heart of London Bridges Walk 2009.

In Memory of Paul Leach The Finance and I.T. team at Fabrick Housing Group sent £190 in lieu of Christmas cards. This donation was forwarded to us by Emma McGough.

• Cally Stowbridge raised £280,

through online fundraising, in respect of a skydive.

• We have received a donation of £500 from AON in memory of Caroline.

• Tom McKirdy took part in the Virgin London Marathon 2010 and raised £734.41.

In Memory of Prashant Joshi “On 22nd August 2009, our son, brother and friend, Prashant Joshi passed away as a result of hypertrophic cardiomyopathy.

He was 22. His condition was unheard of to both us and him, and consequently he was never screened. To those who knew him, Prashant was one of the liveliest people around. His energy and enthusiasm took him around the world. He made others happy, and his tireless charitable work in Brazil and Indonesia will never be forgotten.” The family of Prashant Joshi sent in a donation of £392.

In Memory of Matthew Kamis • Trina Kamis held a Car Boot Sale in October 2009

and raised £230 in memory of Matthew.

• ‘Team Matthew’ raised £265 in sponsorship for the CRY Heart of London Bridges Walk 2009. ‘Team Matthew’ were Albert, Mark and Trina Kamis.

• Shaun Kamis took part in the Virgin London Marathon 2010 and raised £3,059.

In Memory of Claire Keen and Paul Byrne “Please find enclosed a cheque for £290.74 which we would like to donate to the Claire Keen and Paul Byrne Memorial Fund. This money was raised during the Christmas period, where the company raffles off any gifts received throughout the year. This brings the total raised by SE Controls to £605.24 throughout 2009.” Ellen Mould, SE Controls

www.c-r-y.org.uk

In Memory of Giles Leaver Stephen Holmes took part in the Virgin London Marathon 2010 and raised £1,655.77.

In Memory of Iain Lees Sally-Ann and Ian Brightwell took part in the Virgin London Marathon 2010 and raised £3,622.

In Memory of Jonathan Leigh • “I am writing to you as nearly four years ago we lost a very dear friend to our family, Jonathan Leigh, to what was found to be a heart condition.

Throughout a very difficult time Jonathan’s family found a great deal of comfort and support from your charity and as a thank you I wanted to do something in return for the charity. This month I turned 50 and had a large party with a number of close friends and family and rather than asking for presents I invited people to make a donation for the charity. Jonathan’s family were all at the party and I briefly spoke about Jonathan and we made a toast in his memory.

Along with this I placed leaflets on the tables about the work of CRY and also had some of the badges and bands for people to take when they made a donation. As a result we made a total of £450.” Mrs Linda Downing sent in a donation of £450.

• David Leigh sent in donations totalling £150. “This money has been donated by Kerry Hewitt and Mike Taylor along with £40 from my mother’s local church embroidery group.”

• “I am sending you a cheque for £167.50 which was raised at a charity fundraiser in memory of Jonathan Leigh of Pontefract, Yorkshire. We are close family friends of the Leigh family. The money was raised by the customers of our members club in Beverley, East Yorkshire.” Sally-Ann and Kristoffer Rena.

CRY update • Issue 51 • 39

Our

Fundraisers

In Memory of Ian Linington • Maria Beltran raised £2,039.30, through online fundraising, in respect of the Chicago Half Marathon 2009.

behalf of CRY to all concerned for the generous donation, especially Gordon and his lovely family and friends.”

Brenda Luckett.

• Mr D Shine sent in a donation of £100.

• Lucy Stackpool-Moore took part in the Virgin London Marathon 2010 and raised £1,875.

In Memory of Rachael Marie Lord Bruce and Sandra Lord sent in a donation of £1,130 raised at the Pressgang Christmas Luncheon.

In Memory of Martyn Luckett • Brenda Luckett sent in donations totalling £225; £200 was donated at the recent family screening day and £25 from Guarantor Security Limited.

• ‘Devonshire Dumplings’ raised £546 in sponsorship for the CRY Heart of London Bridges Walk 2009. ‘Devonshire Dumplings’ were Brenda, Charlotte and John Luckett and Andrew Henderson.

• Charlotte Luckett took part in the Virgin London Marathon

In Memory of Aaron Lundy • John Lundy sent in donations as follows; £1,000 from the Women’s Institute Kilrea; £1,000 from Mr and Mrs Will Millar, family and friends Coleraine; £5,600 from the McKeown family Armagh; £1,400 from the Chamber of Commerce Newry; £2,000 from the Rotary Club Limavady; £31,000 from Gary McGrotty and David Jones for the Aaron Lundy charity golf day; £4,900 from Patrick and John Trolan and friends, Portstewart; £700 from Alison Wade, Coleraine and £100 from Fr Raymond McCullagh.

• Michael Logan took part in the Virgin London Marathon 2010 and raised £150.

• George McAlpin took part in the Virgin London Marathon 2010 and raised £50.

• Garry McGrotty took part in the Virgin London Marathon 2010 and raised £570.

2010 and raised £2,287.15.

• “Please find enclosed cheques totalling £409.94 to go to

Martyn’s Memorial Fund. These donations came from four different sources; £20 from Mrs Eileen Potter; £14.94 from the collection box at Martin & Co, Holsworthy; £40 from Mr Chris Barber; and £365 from Brenda for the fundraising event ‘Rally of Discovery’.

“On the weekend of April 24th & 25th, at Lower Wembsworthy Farm, John & Brenda Luckett hosted a luncheon stop for the Rally of Discovery Tour. This was a two day event that was held in the South West area. There was a very enthusiastic crowd of trail bike riders who came from different parts of the world and this country and Ireland who took over the Hartland Quay Hotel, The Anchor Inn and some stayed at the West Country Inn as well as some with John & Brenda.

There was a lot of sandwiches to be made and local pasties were had, there was a whip around the lads and people accompanying them and the total in the lunch time was £94.50 by the evening the total amount collected (after a few drinks) was £365. This amazing amount was all given to Martyn’s Memorial Fund, which will be put to the £21,000 already raised to date.

Brenda and John, Nick and Charlotte would like to say a big thank you on

40 • CRY update • Issue 51

In Memory of Stephen Lyness • Patrick Lyness took part in the Virgin London Marathon 2010 and raised £76.38.

• Catherine Lyness took part in the Virgin London Marathon 2010 and raised £1,651.20.

In Memory of Niall MacLennan Christopher Staples sent in a donation of £100.

In Memory of Jack Maddams • Rob Maddams took part in the Leicester Half Marathon and raised £101.20, through online fundraising.

• “The amount has been accumulated over the last couple of years from sponsorship and various other fundraising during my time as manager at Tonbridge Angels FC. One of my players, at Under 18 level, Jack Maddams, tragically died in March 2008 from a heart defect at 17 years of age. I promised Roger, his father, that any monies acquired would be forwarded to you at some point. I hope this goes some way to helping others via your charity work.” Julian Leigh sent in a donation of £454.90.

In Memory of John Magowan “Please find enclosed three cheques from myself, my mother and our local bridge club. They are as a result of the sudden death of my nephew, John Magowan, who lived in Orkney. I am a professor of molecular genetics and I hope that I might, at some

www.c-r-y.org.uk

Our time soon, be able to find out why John and so many others have died. In the meantime keep up your good work.” Ann Hughes sent in a donation of £900.

In Memory of David Maidment Peter Maidment raised £100, through online fundraising, in respect of the Great South Run 2009.

In Memory of Jonny Malpas Lorna Malpas sent in a donation of £121.50 - raised by Jonny’s brother-in-law, Mike Bell and his partner Carol putting away £1 each week, during 2009 and £13.50 from the collection box at Tweedies Clothes Shop in Keyworth. Total donation £135.

In Memory of Mark Marden Laura Humphreys raised £3,750.60, through online fundraising.

In Memory of Oliver Marsden • Sam Blake raised a further £1,729, through

online fundraising, in respect of the Cycle

France 2009. This makes a total raised

of £1,879.

• Bryan Hartley sent in a donation of £636 from the Totnes Rotary Christmas Collection.

• Kevin Marsden took part in the Virgin London Marathon 2010 and raised £3,178.

In Memory of Lewis Marsh Penycate • Suzanne

a further £700, through

fundraising, in respect

the Windsor Half Marathon.

raised £730.

raised online of Total

• “We held a charity event on 7th November at Cheltenham

Racecourse with full view of the biggest firework event in the southwest. We sold an amazing 131 tickets for the event which included a two course meal in the panoramic restaurant, live entertainment from Elegant Entertainment and a charity raffle.

Many local companies in the area donated prizes for the raffle, in total we had 30 prizes, ranging from a full morning spa and champagne retreat at Hotel Du Vin, a red letter day experience and a bottle of champagne. All in all we had a fantastic evening with a lot of money raised and I have the pleasure of enclosing a cheque for £1,000. We would like to donate this money in memory of Lewis Marsh, my best friend Chevaun’s little brother, who had a huge impact on my life. Lewis’s family are a true inspiration and I would like to thank them for the amazing memories and fantastic times we have ahead.” Lisa Boughton, Operations Director, Gillian Kenny Associates Ltd.

• Lucy Linnett and her friend Suzanne Pennycate donated

£700, via Just Giving, in respect of the Windsor Half Marathon.

This makes a total amount raised of £730.

www.c-r-y.org.uk

Fundraisers

In Memory of John Marshall • Maureen Marshall sent in a donation of £380 from Edge Hill University in respect of the F. M. Scottish Log Cabin event.

• Maureen Marshall sent in a further donation of £250 from the collection boxes at Edge Hill University.

This makes a total raised of £3,750.

• Hayley Marshall sent in a donation of £350 from the Maghull & Aughton Rotary Club (Christmas Float).

In Memory of Richard Mason “Last week I retired from work and the fellows from our UK Sales Department gave me £75 to give to a charity of my choice, my cousin gave me a cheque for £25 and my husband and myself have made up the donation from work to £100. I send these donations in memory of my son, Richard Mason.” Val Mason sent in donations totalling £125.

In Memory of Ian Merchant • Doug and Dilys Newman and family held a

mulled wine evening and raised £405 in

memory of Ian.

• “The staff at our old shop (Quadrant Cards) have passed on to me £115, being the contents of our box and Barbara and I would like to add a further £25 to that amount.” Barbara and Dennis Merchant sent in a donation of £140.

In Memory of Luke Meekings Susan and Thomas Meekings, Hannah Battell and Rebecca and Sara Shaw raised £333 in sponsorship for the CRY Heart of London Bridges Walk 2009.

In Memory of Norman John Millen “It was with deep sadness that I lost my husband, Norman John Millen, recently to a massive and unexpected heart attack. At his funeral, and in lieu of flowers, it was decided to request donations for CRY.” Mrs Susan Millen sent in a donation of £1,300.

In Memory of Christopher John Mitchell We have received a donation of £123.01, in lieu of floral tributes, for the late Christopher John Mitchell.

In Memory of Matthew Moody Mr L Moody sent in a donation of £180 from the sale of books and a raffle at the station.

In Memory of Charlie Morettes • Tracey Perry took part in a tandem skydive and raised £595.50, through online fundraising.

CRY update • Issue 51 • 41

Our

Fundraisers

• Allison Spalding sent in donations amounting to £8,977 in respect of the Tiger Ball held in memory of Charlie. The donation is made up as follows: Mr D Atkinson £200, Mr C Fitzgerald £35, Tube Lines Go £300, Mr & Mrs Spalding £8,362 and Louise Anderson Santa Run £50.

• “Please find enclosed a cheque for £228 raised by Haig Spalding by holding a cake sale at his school.” Allison Spalding

• Louise Anderson raised £105, via Just Giving, in respect of the Santa Run London 2009.

• Katie

O’Donoghue sent in a further donation of £747 in respect of the Nottingham Half Marathon.

Total donation, including Just Giving donations, £6,667.88.

Ralph Murwill who collapsed and died after completing the Nottingham Half Marathon 2008

In Memory of Clive Alan Morgan Fran Wells took part in the Cardiff Half Marathon and raised £695, through online fundraising.

In Memory of Libby Moss • Paul Moss took part in the Virgin London Marathon 2010 and raised £4,404.39; of this Michial (Dad) and Ruth raised £736.00; Vivien (Mum) raised £330.00; Jo (Sister) raised £123.00; and Eric and Rosalie raised £250.00

• Lorraine Hardman raised £849 to sponsor Paul to run the Virgin London Marathon 2010. “This amount has been raised by my friends and work colleagues at Greater Manchester Police in memory of my niece Libby Moss who died so suddenly and tragically last year aged just 9 years.”

In Memory of Paul Mulford • Colin and Sandra Mulford forwarded a donation of £250 from Derek Edwards of the Epsom area MG Owners Club and £20 from art related items that Sandra recently sold.

•

‘Team Moley’ and ‘Team TSAC’ raised £4,124.10 in sponsorship for the CRY Heart of London Bridges Walk 2009.

‘Team Moley’ were Emma and Joy Anderson, Valerie Dixon, Gillian and Mark Heath, Barry, Chris, Colin, Jane and Sandra Mulford, Munira Rasul and Jason Scott. ‘Team TSAC’ were Ewen Brown, Peggy and Margaret Etheridge, Gill Haslam, Nicole Mehta, Stephen Parnwell, Annette Peppis and Roy Sherwin.

• Paul Garmeson took part in the Virgin London Marathon 2010 and raised £2,176.45.

In Memory of Andrew Murch Pete Murch raised £1,375, through online fundraising, in respect of the BUPA Great North Run 2009.

In Memory of Ralph Murwill • Martin Baker raised £663, through online fundraising, in respect of the Nottingham Half Marathon.

• Sarah Burns took part in a skydive and raised £175.

• Caroline Overgan sent in a donation of

£360 in respect of the London to Paris Cycle Ride 2009.

• Jate Sheehy raised £1,960, through online fundraising.

In Memory of John McCall • David and Linda Hayes sent in a donation of £100 in memory of their nephew, John.

• Janette and Malcolm Pollard sent in a donation

of £100 in memory of their nephew, John.

• Rebecca Gibson took part in the Virgin London Marathon 2010 and raised £2,800.

In Memory of Allyn McCluskie • Elizabeth McCluskie sent in a donation of £217 which was raised by Filey School at their Christmas Carol Concert.

• Elizabeth McCluskie sent in a donation of £1,560 in respect of various fundraising activities.

• McCain Foods sent in a donation of £500.

• We have received a match giving donation of £750 for Karen Neesom’s various fundraising activities.

• The students of St Margaret’s High School raised £1,000.

• Denise Lewis sent a donation of £1,042 from Lloyds TSB Aberystwyth and another donation of £1,187 in respect of sponsored walk by the cardiac patients of the Bronglais Hospital.

• Karen Neesom sent in a donation of £708.93 from the charity darts night held on 16 March.

42 • CRY update • Issue 51

www.c-r-y.org.uk

Our • David Sullivan took part in the Virgin London Marathon 2010 and raised £707.57.

In Memory of Gareth McDonald Neil O’Sullivan took part in the Virgin London Marathon 2010 and raised £1,856.

In Memory of Paul David McGlynn Mrs K McGlynn sent in a donation of £210, in lieu of Christmas presents.

Fundraisers

In Memory of Ben Newton • “On Sunday 6th February 2010 we held our seventh Birthday Memorial Football Match in memory of Ben Newton. I enclose a cheque for £3,159.62, being the amount raised on this day during the game, through the sale of raffle tickets and an auction after the game. Our Memorial Match consists of Ben’s old Under 16 team-mates playing against a select side made up by Ben’s brother Nick and is always played the week of Ben’s birthday. This year’s event was actually held on what would have been Ben’s 23rd birthday. Nick’s team had a well-deserved win this year and are worthy of holding the cup pending next year’s event.” Jean Heading.

• James Salter-Boyden took part in the Virgin London Marathon In Memory of Jonathan McGrath “Please find enclosed two cheques totalling £500. These donations were raised through a charity football match in memory of one of our junior members who unfortunately died from a cardio related disease. Jonathan McGrath was a 14-year-old active member of Walton Lifestyles who had also worked for the Liverpool county FA.” Mark Lancaster, Walton Lifestyles.

In Memory of Oisin McGuinness • “I enclose a cheque for £500 raised through a Year 13 sponsored walk. We did it in memory of our friend Oisin McGuinness who died on 14th March 2009.” Siobhan McCaffery, Sacred Heart Grammar School, Newry.

• John Lundy sent in £1,802 from Aisling Cole and friends, Newry.

In Memory of Neville McIntosh Dr Kirsty Robinson raised a further £860, through online fundraising, in respect of a skydive making a total raised of £4,087.

In Memory of Simon McNamara • Dominic Jackman raised £2,999.99, through online fundraising, in respect of the Yukon River Quest.

• “Enclosed is a cheque for £1,000 from the Nottingham High

School, in memory of our son Simon who was a pupil there for 11 years. The money was raised by members/families of the various age group rugby teams - Simon played in all age groups up to the First XV.” Mike McNamara

• Rachel and Jennifer Livesey took part in the Virgin London Marathon 2010 and raised £4,297.

In Memory of Tommy McWilliams Mr Pat Layden forwarded a donation of £1,000 from Charlie and the boys’ charity night.

www.c-r-y.org.uk

2010 and raised £1,813.

In Memory of Nikhul Hannah Jusu-Sheriff (aged 9), completed the Adidas 5K Women’s Challenge in memory of her brother Nikhul, who died, aged 14 years, of Wolff Parkinson White Syndrome. Mrs Jusu-Sheriff sent in a donation of £285.

In Memory of David O’Donnell “My name is Maggie Thomas and together with my daughter Tamara, we did a skydive in memory of my nephew David O’Donnell who died suddenly at the age of 23 on 1st January 2009. He was a lively, fit and full of fun young man who loved to skydive in his spare time.”

Maggie Thomas sent in a donation of £200.

In Memory of Kerry-Anne Offord Lisa Cooper took part in the Virgin London Marathon 2010 and raised £3,053.78.

In Memory of Kerry-Anne Offord & David Nunoo David Allen took part in the Virgin London Marathon 2010 and raised £2,649.40.

In Memory of Josh Ogle “Please find enclosed a cheque for £1,075 which was collected at our Christmas Carol Service in December in memory of one of our pupils, Josh Ogle, who died in June last year.” A J Cochrane, Principal, Dromore Central Primary School.

In Memory of John Owens Claire McGarvey, The Enterprise Academy Middlesborough Football Club, sent in a donation of £148 from the School’s Football Tournament in memory of John.

In Memory of Simon Pangborn “On Wednesday 17th February this £100 was given to Simon’s father, Alan Pangborn,

by John Ray Associates Chauffeur Drive after presentation for his retirement.”

Gill Pangborn.

CRY update • Issue 51 • 43

Our

Fundraisers

In Memory of Paul Parker Katrina Parker raised £440 in sponsorship for the CRY Heart of London Bridges Walk 2009.

In Memory of Andrew Parr • Dr Lowe sent in a royalty payment donation of

£503.67 from John Wiley & Sons Ltd in respect

of his book.

• “This has been donated by my mum and her friend, Annie, who busy themselves making greetings cards - all the proceeds they make from this they give to me to send to CRY. Annie in particular has worked hard this year as mum has been unwell. Mum died a couple of weeks ago and wanted you to have this donation in memory of Andrew, her grandson.” Ruth Lowe sent in a donation of £135.

In

Memory

of

Darryl ‘Dazza’ Passfield

Ian Howard (Darryl’s Football Manager) held a Memorial Match on 20th March and raised £334.26 in his memory.

I In Memory of Emma Peek • Lisa Hines took part in the Virgin London Marathon 2010 and raised £2,500.01.

• Fran Powell took part in the Virgin London Marathon 2010 and raised £4,064.50.

n Memory of Jonathan Picker • Julie Picker raised £855, through online fundraising, in respect of the Robin Hood Half Marathon.

• Julie Picker sent in a donation of £816.

In Memory of Alan Porter “Please find enclosed cheques for £120 which we would like to donate in the memory of our son, Alan Porter, who died tragically at the age of 26 years old while on holiday in Cambodia on 19th January 2010.” Helen & David Porter.

In Memory of Craig Powell Team Pringle raised £1,480 in sponsorship for the CRY Heart of London Bridges Walk 2009. Team Pringle were Rebekah Barnard, Michelle Davies, Lynda Evans, Helen, Karen and Amy Fleming, Mark and Luke Powell, Anne Rowe, Michelle Sexton and Rodney and Marlene Upham.

In Memory of Ron Presley We have, to date, received funeral donations totalling £2,320 in memory of CRY’s first Chairman, Ron Presley OBE.

In Memory of James Paterson Heather Samuel raised £165 in sponsorship for the CRY Heart of London Bridges Walk 2009.

In Memory of David Quinney • Mick and Dot Quinney sent in a donation of

£150 from their CRY collection box.

• Heather Trousdale took part in the Virgin London Marathon 2010 and raised £2,463 In Memory of James Paterson and Simon McNamara • Matthew Filkin took part in the Virgin London Marathon 2010 and raised £3,067.91.

In Memory of James Patrick Patterson • “The £237 represents the proceeds of a raffle

held at the Campion Old Boys Rugby club lunch last Saturday. James was a regular player for the club right up to the week before he died of an undiagnosed heart condition and ever since the club and individual members have been very generous in their support and contributors to CRY.” Peter Patterson sent in a donation of £237.

• Matthew Chapman took part in the Virgin London Marathon 2010 and raised £1,711.20.

In Memory of Anthony Rankin Mark Longstaff took part in the Virgin London Marathon 2010 and raised £935.75.

In Memory of Darren Rawling Julie Rawling sent in a donation of £378 raised from a Valentine’s Day raffle held at her work.

In Memory of Edward Reading • Sean Reading raised £130, through online fundraising, in respect of the Great South Run.

• Philip George raised £220, through online fundraising, in respect of the Great North Run 2009.

• Sean Reading took part in the Virgin London Marathon 2010 and raised £980.

• Martin Upton took part in the Virgin London Marathon 2010 and raised £1,400.

44 • CRY update • Issue 51

www.c-r-y.org.uk

Our In Memory of Anton Reid “On 19th September 2009 we held a Charity Ball in remembrance of Anton Reid at Walsall Football Club. This was a very enjoyable night.” Ms Sonia Bailey sent in a donation of £2,869.

In Memory of Tom Reid • Antony Reid sent in donations totalling £225.

• On 26 February Garforth Community College held a ‘Tom Reid’ day and raised £3,000. “We are certainly very proud of the £3,000 that was raised at this event!! Thanks for the ongoing support we have received from staff and students of Garforth Community College for their amazing gesture and contribution.”

Halina Reid

Leeds University students – raising awareness in memory of Tom Reid On 25 March, Leeds Metropolitan University PR students Elizabeth Taylor, Adam Burns and Becky Knowles held a SADS awareness raising campaign at the city centre campus and manned a CRY

Fundraisers

information stand, after reading about the death of 19 year old Leeds student, Tom Reid.

The students handed out CRY leaflets and spoke with other students and interacted and engaged with them by asking them to write a message to a loved one on a heart shaped sticky note which was then

displayed on a glass wall spelling out the word ‘SADS’. Natalie (Tom’s cousin) and Halina and Antony (Tom’s parents) joined the PR Team for a short while from lunchtime.

“It was a very inspiring and memorable day and we are sincerely grateful to the PR Team for their amazing enthusiasm, support and dedication that they have given to us over the last few months and in their brilliant efforts in raising awareness amongst so many young students and staff at Leeds Metropolitan University.” Halina and Antony Reid In Memory of Debbie Rendle Sylvia Pezzack sent in donations totalling £150. £100 from the local Carnival Committee and £50 from friends of the family.

In Memory of Scott Rennie • Victoria Latham raised £1,085.35, through online fundraising, in respect of the Royal Parks Half Marathon.

• Ben Richardson held a Rusty DJ’s night at the Canvas Bar on 19th December 2009 and raised £300.

• Ed Higgins took part in the Devizes to Westminster Canoe Race and raised £2,980 for CRY.

• George Ballard took part in the Virgin London Marathon 2010 and raised £2,975.08.

• Olivia Brown took part in the Virgin London Marathon 2010 and raised £1,060.

In Memory of Alex Roberts The Brook Pub Team raised £730 in sponsorship for the CRY Heart of London Bridges Walk 2009.

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CRY update • Issue 51 • 45

Our

Fundraisers

The Brook Pub Team were Marcus Earwhaker, Scott Hilsden, Mel Hughes, Emma Hughes, Kevin Kyle, Steve Lawford, Mr Levitt, Ami-Jo McEvoy, Richie Rich, Paul, Fiona and Craig Roberts, Floyd, Tracie, Aston and Nicky Robinson, Kirsty and Cassi Roper and Mr Wilkerson.

In Memory of Leslie (Les) Roberts John Weatherall took part in the Virgin London Marathon 2010 and raised £4,245.

In Memory of Luke Rogers • Jon Rossiter raised £143.50, through online fundraising, in respect of the Swindon Half Marathon 2009.

• Angela Rogers sent in a donation of £1438 from the

Christmas Concert and £206 from the winter swim in the sea.

Total donation of £1644 received.

• Julia Keasley sent in a donation of £600 from Jan Rance’s Keep Fit School in memory of Luke Rogers.

In Memory of Liam Ross Colin and Karen Ross and Nicola and Trevor Gardner raised £230 in sponsorship for the CRY Heart of London Bridges Walk 2009.

In Memory of Craig Salmon Gemma Bamford raised £1,372.50, through online fundraising, in respect of the Leicester Half Marathon.

In Memory of Mike Scott “Please find enclosed a cheque for £130, being money raised at our annual Naff Raff at the North York Moors National Park, plus £20 from Mike’s Auntie Carol to mark the anniversary of his death (28th December) in lieu of flowers.” Marje Scott sent in a donation totalling £150.

In Memory of Jack Sheriff ‘Team Jack’ raised £5,255.14 in sponsorship for the CRY Heart of London Bridges Walk 2009. ‘Team Jack’ were Elizabeth Sheriff, John Sheriff, Linda Anthony, Sheila Freir, Jane Galvin, Elizabeth Snowden, Clive Taylor, Jan Taylor, Alberto Verga, Mickey Verga and Vicky Wilson.

In Memory of Mark Shinwell “Please find enclosed the remaining sponsorship money raised by myself, Lesley Craig and Rachel Coutts when we ran the Glasgow 10K in honour of my husband, Mark. We are delighted to have raised a total of £2,060.50 for CRY.” Shona Shinwell raised £1,750.50, through online fundraising, and sent in further offline donations of £310.

In Memory of Ben Simpson • Rob, Penny and Joe Simpson sent in a donation of £121.49 from the New Milton Hockey Club who

46 • CRY update • Issue 51

organised a friendly match over the Christmas period. “Ben played for New Milton for just one season. This donation demonstrates firstly how popular Ben was and secondly what a great bunch of people play for this hockey club.”

• “Our London Golf Day was held at Farleigh Court, Surrey on

Saturday 8th August 2009, where we had 28 golfers playing for the Ben Simpson Claret Jug. The day is a celebration of Ben’s life, where his friends get together and enjoy a game of golf and raise money for your fantastic charity. We had glorious sunshine this year (for a change) and we all had a great day in memory of Ben.” Ian Ritchie sent in a donation of £410.

• Keith and Lucy Hibberd took part in the Virgin London Marathon 2010 and raised £3,985.

• Ian Ritchie took part in the Virgin London Marathon 2010 and raised £2,594.99.

In Memory of Jamie Simpson Nick Oliver took part in the Virgin London Marathon 2010 and raised £2,000.54.

In Memory of

Sarah Simpson

Colin Simpson sent in a donation of £205.

In Memory of Michelle Sinclair “Please find enclosed cheque for £290 given by Markethill Girls Brigade Company, Co. Armagh. The girls collected this money from people going to see their annual GB Display. Miss Gilliam McWilliams, GB Captain asked me to come and receive it from the girls and say a few words about the work of CRY. It was collected for the work of CRY in memory of our daughter, Michelle Sinclair, who died suddenly at Northumbria University in Newcastle-UponTyne, aged 20.” Kim Sinclair In Memory of Kevin Smart ‘The Smarties’ raised £895 in sponsorship for the CRY Heart of London Bridges Walk 2009. ‘The Smarties’ were Debbie, Louise, Lynn and Stephen Smart.

In Memory of Matt Smith • “This money was raised in June 2009 by holding a fundraising party in honour of what would have been Matt’s 21st birthday on 3rd April of last year.

Raffles were held with donations from local businesses (Vegetable Patch, Lifestyle Motor Company, Scott Beszick Hairdressing and Limbert Brothers.) This was attended

by Matt’s many friends and family in aid of CRY.” Susan and Gary Smith (mum and dad) sent in a donation of £1,400.

www.c-r-y.org.uk

Our • “I am pleased to enclose a cheque for £100 which is a late

donation from the Go-Karting event in memory of Matthew (Mattie) Smith, which was held in November 2009, bringing the total raised to £420.” Mr S C Whitney

In Memory of Timothy Spooner • Kris Hawkins raised £1,770.80, through online fundraising, in respect of the London to Paris Bike Ride. This gives a total raised of £2,170.80.

In Memory of Dawn Spracklen and Nadia Bennett Diane and Chris Tomlinson sent in a donation of £300.

In Memory of Lee Philip Stables “Please find enclosed £260 (£200 raised by Jason Lambert at his 40th Birthday Party, £50 donated by Mrs Newby and £10 donated by Mrs McAdams.”

Sharen Stables.

In Memory of David Staff The David Staff Memorial Fell Race, organised by the Darwen Dashers Running Club, raised £643.

This donation was forwarded to us by Jonathan Stubbs.

In Memory of Andrew Stevens • Jenny Andrews raised £185, through online

fundraising, in respect of the Run to the Beat

Half Marathon.

•

Ian Stevens took part in the Virgin London Marathon 2010 and raised £1,872.96.

In Memory of David Styles Michael Styles made a standing order donation of £200 in memory of his brother, David.

In Memory of Paul Sykes ‘Team Sykes’ raised £1,191 in sponsorship for the CRY Heart of London Bridges Walk 2009. ‘Team Sykes’ were Patricia Berry, Edward Blowers, Teresa Davies, David Dillon, Susan Dillon, Anna DillonPatel, Deborah Hyder, Sean Hyder and Carly Sykes.

In Memory of David Tallis Katie Lovett took part in the Virgin London Marathon 2010 and raised £1,916.

In Memory of Suzanne Taylor “Please find enclosed cheques totalling £695 raised from my hand-made cards and Christmas raffle, by my friends and colleagues at the Chester Mail Centre.” Beryl Ewing

www.c-r-y.org.uk

Fundraisers

In Memory of Zoe Teale • Angela Rood, Compass Group UK & Ireland sent in a donation of £951.31.

• Julie Teale sent in a donation of £500.

• Mrs Julie Teale sent in a donation of £500 from the Round Table.

• Julie Teale sent in donations totalling £520; £500 was donated by the Collier’s Arms in Cheslyn Hay.

• Julie Teale sent in a donation of £500 from the members of Fitness First Club

• Julie Teale forwarded a donation of £4,018.67 from the former Wolverhampton City Swimming club, which Zoe swam for.

In Memory of Gareth Llywelyn Thomas • Anne Thomas forwarded a donation of £150 from Gareth’s Nan, Mrs Alma Thomas, who sold handmade cards and knitted items.

• ‘Team Thomas’ raised £435 in sponsorship for the CRY Heart of London Bridges Walk 2009. ‘Team Thomas’ were Anne and Trefor Thomas and Jayne and Wayne Griffiths.

• Ioan Davies took part in the Virgin London Marathon 2010 and raised £2,241.

In Memory of William James Thomson • Mrs A Lowther sent in a donation of £725.20, in lieu of floral tributes, in memory of her late father.

• A donation of £733 has been received from the Charity Dance at Crossmichael Village Hall.

In Memory of Nicholas Thorne “Please find enclosed a cheque in the sum of £200 being monies raised through our Year 11 students of St Bede’s, who organised a Mufti Day here at the school in order to help support CRY under the guidance of their teacher Ms T Taylor.” Marion Mitchell In Memory of Christian Thunhurst • James Connelly and Josh MacDonald took part in the Virgin London Marathon 2010 and raised £3,595.20.

•

Robert Stoker took part in the Virgin London Marathon 2010 and raised £1,730.

In Memory of Scott Thurlow Marc, Marcelle and Michael Thurlow raised £160 in sponsorship for the CRY Heart of London Bridges Walk 2009.

In Memory of Harcourt (Olly) Tucker Susan Webber, Walpole House, The King’s School, Canterbury raised £863, via Just Giving, from a concert held in March 2009.

CRY update • Issue 51 • 47

Our

Fundraisers In Memory of Hannah Turberville • Jeremy Edbrook raised £1,420, through online fundraising, for the London to Paris Cycle Ride.

• Katy Turberville forwarded donations totalling £505.84; £20 from Tracy Light, £125.84 from Kimpton Parish Church Breakfast and £360 from Christmas Treasy Limited who donated £5 for every Christmas tree they sold.

• Gerard Stubbs raised a further £3,215, through online fundraising, in respect of the London to Paris Cycle Ride Challenge 2009. This makes a total raised of £4,585.

• “As chairman of the Harpenden Carnival 2009 I am thrilled

to enclose a cheque for £1,750 raised at the Harpenden Carnival on 17th May 2009. We at Harpenden Round Table send you our very best wishes and gratitude for the fantastic work you do and it has been our pleasure to contribute in some way to give support to those who need it so badly.” Iain Sinnott, Chairman, Harpenden Carnival 2009, Harpenden Round Table

In Memory of Paul Wilkins • “I am the team captain of the Ball Busters Flyball Dog Club. As you know we have previously donated funds to you from the proceeds of a Tombola and Raffle which we run at our indoor flyball tournaments at Maidstone. I am very pleased to enclose a cheque in the sum of £100 which we raised for your charity at our tournament in January.” Debbie Collins

• Pam Oates held a charity fundraising disco on 10 January in memory of her son, Paul, and sent in a donation of £650.

• Katy Turberville forwarded a donation of £1,500 from the

Southdown Methodist Church, Harpenden in memory of Hannah.

• Helen Pyne took part in the Virgin London Marathon 2010 and raised £365.

In Memory of Leon Walker Katy McDonnell raised a further £1,155, through online fundraising, in respect of the BUPA Great Yorkshire Run, and sent in a further donation of £165 making a total amount raised of £2,466.

In Memory of Matthew Wallbank • Eddie Whittle sent in a final donation of £1,086 in respect of the Six Peaks Challenge.

• Eddie Whittle raised £405, through online

fundraising, in respect of the Matthew Wallbank Memorial Dinner Dance.

In Memory of Neil

David Staff

•

Wickers &

Ashleigh Primary School sent in a donation of £446.69.

• Darwen Rural Neighbourhood Board sent in a donation of £6,500.

In Memory of Neil Wickers • Irene Wickers forwarded a donation of £1,000 from Wendy Ruggieri, Blackburn with Darwen Borough Council ‘Cash for Communities’ funding.

•

Marks & Spencer, Blackburn, held a bag pack and raised £658.50.

48 • CRY update • Issue 51

“ D e s p i t e i n c l e m e n t w e a t h e r conditions, the second anniversary in memory of Paul went ahead on 9th January and proved to be just as successful as last year.

Once again the Maybloom Working Men’s Club kindly offered the function suite and staff free of charge and this year Mitchell, Paul’s younger brother, was the resident DJ after taking over Paul’s legacy, “Oh What A Night” disco.

People may have arrived in fancy wellington boots and snowsuits but they got there and helped to raise a staggering

www.c-r-y.org.uk

Our £2,800 for CRY and Bexley police cadets.

We started once again with a raffle and had some fantastic prizes donated by Island Records, Starbucks, Millwall FC, Holiday Inn, the Paul O’Grady Show, Sainsbury’s, T.K Maxx, Pizza Hut, Acadia Group, David Lloyd, Watford FC, Canon Printer from Blutex, theatre tickets for Oliver Twist from The Really Useful Group, We Will Rock You tickets from Nederlander Dominion Ltd and Staplehurst Road Garage who donated a free MOT. Sarah Coleman and Becky Townsend also donated free haircuts and colours.

Fundraisers

In Memory of Rianna Wingett “Rianna died suddenly and unexpectedly on 27th November. Rianna was a delightful member of year 7, about to celebrate her 12th birthday. She enjoyed all aspects of school life. She was hard working and enthusiastic, displaying qualities to which we should all aspire.” G Mayoh, Head Master of Abbs Cross School and Arts College, sent in a donation of £1,400.

In Memory of James Wood Gill Wood enclosed a cheque in the sum of £300 from the Broxbourne Tennis Club’s annual family tennis day in memory of James.

Thanks also to Katie Locke for supplying invitations; Inspirations in Bexleyheath for donating a large CRY heart balloon; and wines and spirits were greatly received from various people.

The highlight of the night was definitely the auction undertaken

by Paul’s dad, Steve. The auction included a signed football from Arsenal FC and a signed England shirt generously donated by the F.A. where Paul did his work experience in 2001. These two items alone raised £900 pounds and we would like to express our sincere thanks to the winning bidders.

HSBC also contributed £500 to our fundraising, which we are very grateful for.

The night was filled with emotions, family and friends reflecting and remembering Paul and what he meant to them, celebrating his life and celebrating what would have been his 24th birthday in a manner that Paul would definitely have approved of. It was certainly a memorable night.

We will continue to raise money in memory of Paul every year on his anniversary/ birthday and would like to thank all Paul’s friends and family for making this possible.” Pam Oates (Paul’s Mum)

• Amanda Smith raised £445 in sponsorship for the CRY Heart of London Bridges Walk 2009.

• Pam Oates sent in a further donation of £250 from the charity night held on 10 January.

In Memory of Julian Wort “Chris Rumming (Julian’s best mate) arranged a card/poker evening just before Christmas and they raised £125.” Shirley Wort forwarded a donation of £125.

In

Memory

of

Daniel Young Paul Hodson, Atherton & Tyldesley Round Table sent in a donation of £6,000 from the 21st Bent and Bongs Beer Festival.

In Memory of Mark Young • David Halliday took part in the Virgin London Marathon 2010 and raised £1,382.30.

• Neil Robertson took part in the Virgin London Marathon 2010 and raised £140.

In Memory of David Williams • Sue Williams sent in a donation of £300.

• Claire Jones raised £100 in sponsorship for the CRY Heart of London Bridges Walk 2009. www.c-r-y.org.uk

CRY update • Issue 51 • 49

Our

Fundraisers

General Fundraising • Phil Aiken raised £1,045, through online fundraising, in respect of the London Triathlon 2009.

• J M Akroyd sent in a donation of £100.

• The Year 6 children of Alban Church of England Middle School raised £17.42 for CRY

• Mark and Judith Albanie sent in a donation of £100.

• “I enclose a cheque for £2,100. This has

been raised through the efforts of the Charity Committee of Spurgeon’s House at Alleyn’s School, and the whole school community in general. Over the course of a year we put on a number of events, such as quiz evenings, cake sales, stalls and a dance show.” Lewis Geldeard, Spurgeon’s Housemaster

• Ruth Allington raised a further £455, via her online fundraising page.

• Val Mason, The Angle Ring Company, sent in a donation of £150 in lieu of Christmas cards.

• Alex Attelsey raised £210, through online fundraising, in respect of the Royal Parks Half Marathon.

• A charity auction was held on 25 March at the Queen Elizabeth Hospital and raised £4,068.99 for CRY. This was forwarded to us by James Bailey.

“Last March I signed up to be screened when the CRY team visited my school, QEH Bristol, merely as a precaution, not expecting anything to be wrong. However, there was something wrong.

The ECG revealed me to have Wolff-Parkinson White syndrome, and as a keen sportsman, this came as a huge surprise. I knew very little about heart syndromes, and what I presumed was that they mainly affected the old or obese.

Unfortunately immediately after being scanned I made the big mistake of looking up WPW on Wikipedia and was greeted by a number of scary facts. Though after coming to terms with the facts, and overcoming the initial wish that I could forget all about the problem at hand, I realised how fortunate I had been.

Through the CRY website and other sources I soon became aware of how many young people are not as fortunate as I was. The first time they discovered they had a problem, it was too late.

In order to combat the syndrome, I initially went on medication, before I had the cardiac ablation operation in June. Despite the high success rate of the operation, and the surgeon operating on me for over six hours, the operation was not a success. This was very hard to take, as I desperately wanted to move on, get back to my normal life.

50 • CRY update • Issue 51

A few months later though I was back in the operating theatre, and although this time even more nervous as I was without general anaesthetic, the operation worked.

It felt fantastic to be back on the football pitch, to be free from the worries. However, now I was aware of such heart syndromes, I was keen to do my bit to raise both funds and awareness.

As such my school have invited CRY back again this year, and I’ve encouraged as many other boys to undergo the screening. Furthermore, I organised a charity auction for the pupils and parents.

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Our

Fundraisers

I was very fortunate to receive the support of many celebrities, sports stars and companies, allowing the auction to boast an impressive collection of ‘lots’.

• Brookfield Construction (UK) Limited sent in a donation of

Whether it was the signed celebrity memorabilia (from such stars as Gordon Brown, Manchester United, Usain Bolt, Roger Federer and Sir Tom Jones), fine artwork or show tickets, there was something for everyone.

raised at Business Link West Midlands through our Dress Down Days held at work.” Mitch Raymond, HR & MI Support Assistant.

The evening proved very popular and with many very willing to donate money to the worthy cause, we raised a fantastic total of over £4100.

I’m very glad I was able to help CRY in this way, and hope I can do more for the charity in the future. Without them, I don’t know where I would be right now.

.• We are pleased to inform you of our successful Charity Sweet Sale held on 26th January at Barclays Bank, Gadbrook Park in aid of CRY and we managed to raise £150!” Clare Plant, Barclays Commercial Bank Learning Team, sent in a donation of £150.

• Barclays Bank, Northwich, sent in a match-giving donation

of £150 in respect of Clare Plant’s charity Sweet Sale at Gadbrook Park.

• “We are writing to you on behalf of Blue Community at

Blackfen School for Girls to let you know you are our community’s chosen charity! Already we have held lots of fundraising events. Each form in Blue Community was given a task to come up with ideas on how we can raise money for CRY and then run the events themselves. Each form came up with fantastic ideas, and ran them very smoothly. Here are some examples: Christmas market, staff car wash, sponsored silence, sponge a teacher, cake and sweet sales.

We are proud to have raised £500, but we are not done yet.

In the future we are going to come up with more ideas and hold more fundraising events.”

The Activity Managers and the whole of Blue Community, Kemi Oyenian and Shokina Ali.

• “This amount was kindly donated from friends and family

who attended our recent 50th Anniversary party. Ernest and Patricia Braddick sent in a donation of £177.50.

• Alexandra Bradley raised £266.20, through online fundraising, in respect of the Robin Hood Marathon 2009.

• Stephen Bramley raised £142.50, through online fundraising, in respect of the Birmingham Half Marathon.

• “Please find enclosed a donation of £335 that was raised by

the staff at Hiatt Baker Hall at their annual Christmas raffle in December 2009. It was agreed that this year’s donation would be to your charity after someone here lost their grandson last summer. He was only 19 but died of a heart problem whilst out running.” Jo Robinson, Hall Bursar, University of Bristol.

www.c-r-y.org.uk

£250 for CRY.

• “Please find enclosed a cheque for £105.56 which has been

• Fergus Ross Ferrier, Cartridges4Charity, sent in a donation of £2,144.88.

• “Before Christmas our company set up a Christmas Advent

Calendar. As a prize for one of our daily competitions we decided to give the winner £500 to donate to a UK registered charity of their own. The winner chose your charity to receive the £500.” Kirsten Swann, Business Development Assistant, CFC Underwriting Limited.

• Chubb Insurance donated £467.06 to cover refreshments at the CRY Heart of London Bridges Walk 2009.

• Anne Clouston raised £375, through online fundraising, in respect of the Run to the Beat Half Marathon 2009.

• Edward Coley and Nick Tissot took part in the Isle of Wight Kayak event and sent in a donation of £5,305.

• Fabiola Craddy raised £280,

through online fundraising, in respect of the Run to the Beat Half Marathon 2009.

“I did it in 2h 06’ 22’’ I truly enjoyed running it, the Sun was out and it certainly kept me smiling all the way through the 21K.”

• Kevin Danagher took part in

the Virgin London Marathon 2010 and raised £1,207.01.

• Michael Darby raised £952.50, through online fundraising, in respect of the LEJOG.

• “We are writing to you on behalf

of Chartwell House from Dartford Grammar School for Girls. Annually, each of the six school houses holds a ‘Charity Week’ in which events are organised to raise money for a chosen charity and Chartwell House’s week was 22nd - 26th February. We raised money for both CRY and the Haiti Earthquake Appeal. We thought your organisation might be interested to learn what events took place to raise the £291.98 we are donating to your charity. Events included an Easter Egg Treasure Map, Talent Show, Cake Sale and an event called ‘Las Chartwell’.” Kat Behague, Charlotte Benson and Georgia-May Barnes, House Captains of Chartwell.

• Mr G Davies sent in a donation of £510.

CRY update • Issue 51 • 51

Our

Fundraisers

• “Christmas is ultimately a time for families and a difficult time

for the bereaved, so we offer those who have lost a loved one the opportunity to dedicate a star in memory of those who have died. These stars are hung in our window and on our special Christmas Tree of Remembrance over the Christmas period, as a sign of love and thanksgiving.” Janet C Davies, Funeral Director, sent in a donation of £567.86.

• Mariano Dima took part in the Virgin London Marathon 2010 and raised £2,559.35.

• Tara Gore, CRY Divisional Representative, collected a

cheque from Barbara Packham, Dover & District Skittles Association’s principal fundraiser. Following the receipt of this £300 donation last year, a short write-up follows:

“Tara helped out with the distribution of the trophies to around 30 winning teams and individuals.

We had a wonderful evening with around 150 people in attendance, and this was followed by a second presentation night a week later, with another 130 or so picking up their awards. We were so glad that your charity was chosen this year, as the Skittles Association has recently lost two younger members to undiagnosed heart problems, and we can only wish your campaigning all the very best for the future.” Brian Constable, Chairman

• “Each year we stage three performances of our Christmas Concert for parents and relatives and instead of charging an entrance fee we nominate a charity of our choice, usually associated with a pupil within school.” Sue Adams, Head teacher, Earls Barton Infant School, Northampton, sent in a donation of £520.38.

• Linda Eastty raised £100 in sponsorship for the CRY Heart of London Bridges Walk 2009.

• Huw Edwards took part in the Virgin London Marathon 2010 and raised £710.

• Mark Emin raised £266, through online fundraising, in respect of the Croydon 10K.

• ‘Team Epson’ raised £585 in sponsorship for the CRY Heart

of London Bridges Walk 2009, walking in support of Joanne Rentle. ‘Team Epson’ were Laura Foody, Nadine Rey-Barry and Mark Robinson.

• Epson sent in a match-giving donation of £585 in respect of ‘Team Epson’ completing the CRY Heart of London Bridges walk 2009.

52 • CRY update • Issue 51

• David Evans sent in a further donation of £150 in respect of the Great North Run.

• “Please find enclosed a cheque for £500 as a donation on behalf of the members of Eversley Park Masonic Lodge No. 4577.” M C Snow, Charity Steward

• Matt Fisher took part in the Virgin London Marathon 2010 and raised £1,660.

• ‘Five Valleys’ raised £281.50 in sponsorship for the CRY Heart of London Bridges Walk 2009. ‘Five Valleys’ were Robert and Vivien Cook , Claire and John Fivash and Angela Knight.

• Brian Ford raised £140 in

sponsorship for the CRY Heart of London Bridges Walk 2009.

• Foresters,

Heathrow Branch, donated £200, following a talk given by CRY Representative Martin Appleby and CRY Fundraising Manager Rebecca Zouvani.

• Foresters donated £3,500 in respect.

• Frodsham CE Primary School sent in a donation of £120.

• “Please find enclosed a cheque for the sum of

£129.03. It represents a charity donation for monies raised by Sgt Garry of Signal Troop at Camp Bastion in Afghanistan.”

P M Shanks, Flight Sergeant Force Cashier

• Michael Girling raised £165 in sponsorship for the CRY Heart of London Bridges Walk 2009.

• Angus and Marylin Glen-West raised £100 in sponsorship for the CRY Heart of London Bridges Walk 2009.

• Chris Gordon took part in the Virgin London Marathon 2010 and raised £2,835.

• Daniel Grace raised £1,510, through online fundraising, in respect of the Shanghai Marathon.

• Matt Greenwood took part in the Virgin London Marathon 2010 and raised £278.

• Mr P Austin, Guildford Hockey Club, sent in a donation of £511 for CRY.

• Claire Hammond raised £152 in sponsorship for the CRY Heart of London Bridges Walk 2009, walking in memory of her father.

• Sheila Hammond, Sarah, Gerald and Sam Johnston raised £1,035 in sponsorship for the CRY Heart of London Bridges Walk 2009, walking in support of Sam.

• CRY Patron Kathryn Harries sent in £144.53 from a cash

collection at the Carlisle Festival in respect of the CRY Heart of London Bridges Walk 2009.

www.c-r-y.org.uk

Our

Fundraisers

• David Hay sent in a donation of

• Bethan Jackett took part in a tandem skydive and raised

• Dr Jennifer Heazlewood raised

• Christina Jacklin sent in a further donation of £115 from the

£100.

£500, through online fundraising, in respect of the Birmingham 5K run.

• Robert Henderson took part in the Virgin London Marathon 2010 and raised £432.50.

•

We have received a donation of £100 from Tarquin Henderson, Hill & Knowlton.

• Michael Hicks took part in the Virgin London Marathon 2010 and raised £1,650.

• Cerion Hill took part in the London to Paris Cycle ride and raised £1,467.03, through online fundraising.

• “CRY has been successfully nominated by staff from HM

Revenue & Customs, based in Waterview Park, Washington to receive a donation from the Charity Committee Annual Appeal 2009. Please find enclosed a cheque for £500.”

Susan Middlemas, Charity Committee Chair, HM Revenue & Customs.

•

“As the Commanding Officer of HMS Northumberland I am delighted to enclose a cheque for £517.33 that my Ship’s Company has chosen to donate to your charity. Earlier this year we returned from a six month deployment carrying out anti-piracy patrols in the Gulf of Aden and during this time we managed to host an array of events from an ‘Iron Man’ competition to various ‘race nights’.

Your charity was put forward by one of my Ship’s Company, Able Seaman ‘Jackie’ Tordoff, who a few years ago suffered a loss of a young family member due to cardiac problems.” Commander P L Allen, MA Royal Navy.

• “I recently celebrated my 70th birthday. Instead of presents I asked for donations to a charity of my choice. I would like it to go to Cardiac Risk in the Young.” Mr G Howlett sent in a donation of £150.

• Brenda Hughes sent in a donation of £100.

• Nuggy Joannides gave a donation of £100 towards the CRY Heart of London Bridges Walk 2009.

£120.

Climb Mount Kilimanjaro 2009, making a total raised of £820.

• Nuggy Joannides gave a donation of £100 towards the CRY Heart of London Bridges Walk 2009.

• King’s College School, Wimbledon Common, sent in a donation of £127.02 for CRY.

• The King’s School, Worcester, sent in a donation of £2,300.10 from their Carol Service.

• Las Bodegas sent in a donation of £350 from their wine tasting profits.

• “This amount was raised by my husband, Cliff Law, from

sponsorship for a number of sporting challenges he completed mostly in 2008/2009. Some of the events included various Ironman Triathlons such as Dorset and Lanzarote and also the Grano Fondo Bike Ride in Italy. There is quite a long list, too numerous to mention! We hope you can put the money to good use.” Mrs Christie Law sent in a donation of £7,000.

• Emily Leighton-Smith raised £110, through online fundraising, in respect of the Run to the Beat Half Marathon 2009.

• Johannah Lynch, Barclays Commercial HR Team, sent in donations of £140.18 and £233.70 from various fundraising activities.

• Johannah Lynch sent in a donation of £235 from her recent fundraising activities.

• “We are a group of people who live in a McCarthy & Stone

retirement development and every month we have a raffle and send some of the proceeds to various charities of our choice. This month we would like to support CRY and have pleasure in enclosing a cheque for £100 which we hope will go towards your very worthy cause.” Barbara Lacroix and all the residents of Mead Court.

• Dawn McMorrow raised £582, through online fundraising, in respect of the Run to the Beat Half Marathon 2009.

• “My work colleagues and I took part in the ‘Hoofers’ Relay

Marathon Event in Nottingham and raised £1,000 through our sponsorship. The relay took place alongside the Nottingham Marathon Sunday 13th September 2009. We split into three teams and ran the full marathon in 10KM legs each within

• Kings College School, Wimbledon Common, sent in a donation of £127.02

• Ian Middlemiss Embroidery sent in a donation of £100.

• Calista Ibbitson raised a further £132.50, through online fundraising, in respect of the Royal Parks Half Marathon.

• James Bleaney, ICAP Securities Limited, sent in a donation

of £1,000 as the winning bid for the ICAP auction of Bjorn Borg’s tennis racquet.

www.c-r-y.org.uk

CRY update • Issue 51 • 53

Our

Fundraisers

4 - 5 hours. When I was 17 I had a Pacemaker fitted due to the lower pumping chambers of my heart failing at irregular intervals without any pre-warning. This then caused me to pass out and my heart would stop for 2 or 3 seconds at a time. Thankfully now though, 8 years later, I have a life the same as any other 25 year old and do not experience any more problems. I have always wanted to do something to help other young people who suffer from cardiac problems, so last year when we were asked by our manager for any suggestions on a chosen charity, I decided to put CRY forward.

After doing some research on charities I came across CRY. The hard work and commitment that you provide to these young people inspired me and I feel privileged to have taken part in an event while flying the flag for CRY.” Mark Mee sent in a donation of £1,000.

• Sia Mehta raised £162.50 from the night of music and dance at Northampton University.

• ‘Milestone’ raised just under £100 in sponsorship for the CRY Heart of London Bridges Walk 2009. ‘Milestone’ were SSN Supporter Julie Mills and Philippa Stone.

• Piers Milligan took part in the Great South Run in October 2009 and raised £135.

• “On behalf of Mizuho International plc employees, I am delighted to present your charity with a donation of £2,413.50 which we raised through our Company Christmas Raffle.”

Mary Ann Broughton, HR Department, Mizuho International plc.

• Beth Molan raised £205, through online fundraising, in respect of the Nike 10K.

• Moulsham High School, Chelmsford, sent in a donation of £155 for CRY.

• “I am writing to you on behalf of 2 MT Sqn

Charities Committee. Last year we chose CRY as our dedicated charity. Over the past twelve months we have organised various charity events such as: car washes, truck pulls and placed collection buckets at our social events. We have managed to raise a total of £448.” Cpl C Mullan, 2 MT Sqn Charities Committee Treasurer.

• ‘M&S HR Graduates’ raised £1,001

in sponsorship for the CRY Heart of London Bridges Walk 2009. ‘M&S HR Graduates’ were Katie Blease, Andrew Francks, Josh Gething, Stephanie King, Beth Ryder, Rachel Skidmore and Mark Williams as part of the M&S 125th Anniversary campaign to raise £1.25m in 125 days for local charities.

• Emma Neaves completed the Adidas Women’s Challenge 2009 and raised £1,000 for CRY.

54 • CRY update • Issue 51

• “Following our pupils’ recent Christmas performance a

collection raised £114.75 which pupils have requested be donated to your charity.” Mrs H C Sims, Finance Officer, New Ash Green Primary School, Kent.

• David and Sammy-Jo Nelder raised £155 in sponsorship for the CRY Heart of London Bridges Walk 2009.

• Mark Nicholas took part in the Virgin London Marathon 2010 and raised £50.

• Patrick and Patricia Nolan sent in a donation of £200 for CRY. • Catherine Noller took part in a tandem skydive and raised £135.

• “Each Christmas Nova Leathers looks for both a

local and national charity to support and we send a donation in lieu of the purchase of Christmas cards.

This year we have chosen CRY as our national charity.”

Mark Perren, Chairman, Nova Leathers (Bristol) Limited sent in a donation of £250.

• Thomas O’Flaherty took part in the Virgin London Marathon 2010 and raised £1,703.40.

• Bethan Paice raised £989.50, through online fundraising, in respect of the Three Peaks Challenge.

• Sarah Parsons took part in the Virgin London Marathon 2010 and raised £2,243.

• Mrs P Robb, The Parish Church of St. Peter & St Paul, Pickering, sent in a donation of £581.36 from their Town and Junior School Carol Services.

• “It is with great pleasure that I enclose a cheque for £500. This

relates to matched funding by our parent company Pearson.

This was to match £500 of the amount raised by our staff in a beard growing competition.” Paul Talbot, on behalf of the Penguin Charity Committee.

• Joanne and Perry Rentle raised just under £100 in

sponsorship for the CRY Heart of London Bridges Walk 2009.

• Jimmy Reynolds raised £1,110, through online fundraising, in respect of the London to Paris Cycle Ride.

• Selina Robertson took part in the Newham 10K and raised £1,720 for CRY.

• Lucy Robinson took part in a tandem skydive and raised £345.50.

• Jonathan Rosenbrier took part in the Virgin London Marathon 2010 and raised £181.

• CRY Patron Phil Packer forwarded a donation of £250

www.c-r-y.org.uk

Our from the Royal International Welsh Disabled Sports Team Championship as a thank-you for attending the games and talking to the competitors.

• “Every year at this time, the

members of the Court of the Worshipful Company of Saddlers of the City of London are invited to nominate the charity of their choice to receive a donation from the company’s charitable fund. The enclosed cheque for £300 comes with the good wishes of the Master and Wardens, on the nomination of Past Master Iain Pulley.”

N CD Lithgow, Clerk to the Company.

• St Andrew’s 75th Diamond Anniversary Summer Ball 2009.

Karen Brown sent in a further donation of £825 in respect of the Ball at St Andrews, Pangbourne. This makes a total raised of £9,325.

• “Please find enclosed a cheque for £200. The pupils, parents

and staff of St Martin’s raised this amount through one of our Charity Appeals for last term.” Irene S Tyrrell, Headteacher, St Martin of Porres RC Primary School.

• “I am pleased to enclose a donation of £360 being half the money raised by our village carol singers this year.

It is traditional to share the full proceeds between our church, St Mary’s Essendon and a charity and one of our people picked up a postcard at a local supermarket and suggested this year we support yourselves. You are doing great work. We hope this will save some young lives.” Colin Rees.

• “Please find enclosed a cheque for £302.60. The money was

raised from donations to our ‘Charity Christmas Tree 2009.’

“John Proffitt, Head of Cemeteries & Crematoria, Sefton Council.

Fundraisers

• Alyson and Tony Stokes raised £210 in sponsorship for the CRY Heart of London Bridges Walk 2009.

• Michael Turner raised £705, through online fundraising, in respect of the tandem skydive.

• Mrs G L Upham recently celebrated her 80th birthday and sent in a donation of £150 in lieu of presents.

• Waitrose, Worcester Park, sent in a donation of £300 from ‘Community Matters’ fundraising.

• Ellie Waller raised £588.10, through online fundraising, in respect of the Royal Parks Half Marathon.

• “On behalf of the Walton on the Hill May Pageant Committee, I am delighted to enclose a cheque for £350 from the proceeds of last year’s Pageant.” Victoria Kent - Walton May Pageant Committee.

• “I am pleased to present a cheque for £1,300 from various

fundraising events arranged during my year as Worshipful Master of Walton Walker Lodge.” W. Bro. Jim Cairns, Walton Walker Lodge.

• Leonie Watson raised £478.10, through online fundraising, in respect of the Royal Parks Half Marathon.

• Jon Weait raised £305, through online fundraising, in respect of the Bristol Half Marathon 2009.

• Claire Wilkinson raised £158.50, through online fundraising, in respect of the Tees Pride 10K 2009.

• David Wright took part in the Virgin London Marathon 2010 and raised £1,660.

• Claire Wilson raised £265, through online fundraising, in respect of the Vietnam Bike Ride.

• Mary Wright sent in a donation of £105.

• “I enclose a donation for the sum of £1,000 which myself

and other members of the Wye Valley Axemen raised during 2009. We are a small team which gives demonstrations of old and new lumberjack techniques using razor sharp axes and saws at shows and carnivals. All our fees which we charge for these events go to our chosen charities for that year. For 2009 we chose yourselves, the Noah’s Ark Appeal and a local primary school which have also received £1,000 each.”

William Hughes, Treasurer – WVA.

• Neelam Sharma raised £1,080, through online fundraising, in respect of the Adidas Women’s Challenge.

• Simmons Interiors sent in a donation of £120 from the sale of Christmas decorations.

www.c-r-y.org.uk

CRY update • Issue 51 • 55

Fundraising Events 2010-2011 A few ideas...

The Big Fun Runs around the UK, throughout the summer and autumn The Big Fun Runs are a series of 5km runs and have been taking place in parks across England, Scotland and Wales. Each venue has been carefully selected - they all take place exclusively within scenic parks that are both safe and pleasant running environments. Those who register to run for CRY benefit from a discounted entry fee. A full list of venues and dates can be found on the event website www.bigfunrun.com. Southampton, Maidstone, Watford and Cheltenham events are still available.

Reading Half Marathon

CRY Awareness Week 9 to 17 October 2010 To help raise awareness about young sudden cardiac death, why not run a raising awareness stand in your local area or work place, organise your own fundraising event or activity or take part in a CRY fundraising event. Please contact ben@c-r-y.org.uk if you would like to get involved.

17 April 2011 The 2011 event takes place on Sunday 17 April. The public ballot for places has closed, but you may still apply for a CRY Golden Bond place via CRunCH - www.crunch.org.uk/cry. Demand for Golden Bond places always exceeds the number of places available, so please act soon! If you are successful in the ballot and would like to run for CRY please e-mail events@c-r-y.org.uk.

NEW FOR 2010

JUST WALK

Durham Walk 9 October 2010 Sponsored riverside fundraising and raising awareness walk in Durham. Please e-mail events@c-r-y.org.uk if you are interested in taking part.

Royal Parks Foundation Half Marathon 2010 10 October 2010 The deadline for CRY places has now passed but we are still looking for ‘own place’ runners wishing to run for CRY or runners who would like to run in a CRY Heart costume. We can provide runners with a CRY running vest/T-shirt and a runners’ pack.

Please e-mail events@c-r-y.org.uk.

Great South Run Portsmouth, 24 October 2010 The deadline for CRY places has now passed but we are still looking for ‘own place’ runners wishing to run for CRY or runners who would like to run in a CRY Heart costume. We can provide runners with a CRY running vest/T-shirt and a runners’ pack.

Please e-mail events@c-r-y.org.uk.

London 5 km Santa Run/Walk 5 December 2010 If you have ever wanted to get involved in a 5km run, here is your chance. On Sunday 5 December in Greenwich Park, London, around 2,000 ‘Santas’ are expected to take part, raising over £100,000! CRY is looking for volunteers to take part and you can be part of this fantastic event with just a small registration fee and raising the suggested minimum sponsorship. No previous experience is required and with a bit of training the 5km distance should easily be within your capabilities. The spirit of the event is ‘taking part’ not ‘winning’ so you can run, jog or walk - you decide! With places extremely limited you should book early to avoid disappointment! Free Santa suit included in the entry fee!

To book your place email ben@c-r-y.org.uk or call us on 01737 363 222 for more information.

www.c-r-y.org.uk

20 March 2011 CRY does have a limited number of charity places for this event, and we also welcome any ‘own place’ runners who would like to run for CRY. You can apply for your ‘own place’ via www.readinghalfmarathon.com Please e-mail events@c-r-y.org.uk if you are interested in a CRY charity place; are an ‘own place’ runner wishing to run for CRY; or if you would like to run in a CRY Heart Costume.

Virgin London Marathon

7 May 2011 A 10K, 2K, 40K or 60K walk over the South Downs in Sussex.

Please e-mail events@c-r-yorg.uk for further details or visit www.c-r-y.org.uk/upcoming_events.htm

BUPA London 10,000 30 May 2011 (subject to confirmation) CRY does have charity places for this event, and we also welcome any ‘own place’ runners who would like to run for CRY. The BUPA London 10km will be run on the course likely to be used for the 2012 Olympic Marathons. You can apply for your ‘own place’ via www.london10000.co.uk. Please e-mail events@c-r-y.org.uk or contact Laura on 01737 363 222 if you are interested in a CRY charity place; are an ‘own place’ runner wishing to run for CRY; or if you would like to run in a CRY Heart Costume.

Big Heart Bike Ride Tanzania,

18 to 26 June 2011 A 400 kilometer bike ride through Tanzania, Africa, to raise money for four heart charities including CRY. Registration is open throughout 2010 for this event, more details at www.c-r-y.org.uk/big_heart_bike_ride_2011.htm

CRY Heart of London Bridges Walk 17 July (subject to confirmation) A sponsored annual walk to raise awareness and funds for CRY. Please e-mail events@c-r-y.org.uk to register your interest

Parachute Jumps Assorted dates For further details, please visit www.c-r-y.org.uk/parachute_Jump.htm For more information visit www.c-r-y.org.uk/fundraising.htm

CRY update • Issue 51 • 67

Cardiac Risk in the Young Head Office: Unit 7, Epsom Downs Metro Centre, Waterfield, Tadworth, Surrey KT20 5LR Tel: 01737 363222 Fax: 01737 363444 E-mail: cry@c-r-y.org.uk

www.c-r-y.org.uk

Our Mission When Cardiac Risk in the Young (CRY) was founded in 1995 it was the first organisation to draw attention to the range of conditions that can cause young sudden cardiac death (YSCD).

These include arrhythmogenic right ventricular cardiomyopathy (ARVC) and other abnormalities leading to sudden arrhythmic death syndrome (SADS).

Every week in the UK at least 12 apparently fit and healthy young people die of undiagnosed heart conditions.

CRY aims to reduce the frequency of YSCD by working with cardiologists and family doctors to establish good practice and appropriate screening facilities to promote and protect the cardiac health of our young.

CRY believes cardiac screening should be accessible to all young people aged between 14 and 35.

CRY also works to guide and support families and close friends affected by YSCD. The Charity aims to put them in touch with people who have the appropriate knowledge and experience to answer their questions. We provide information to explain what the coroner does, practical guidelines to help with NHS referrals and advice on the procedures that usually follow a YSCD. In addition, CRY publishes a range of medical information written by leading cardiologists that is easy to understand and made available

Our Patrons The urgency of CRY’s mission and the quality of our work has compelled many high profile personalities to give their time to become Patrons of our Charity.

Current Patrons of CRY: Rob Andrew MBE, Jeremy Bates, Ben Brown, Mark Carruthers, Clive Clarke, Mark Cox MBE, James Cracknell OBE, Nick Easter, Jonny Evans, Simon Halliday, Kathryn Harries, John Inverdale, Pat Jennings OBE KSG, Robert Jones MBE, Gary Longwell, Pixie Lott, Professor W J McKenna, Graeme McDowell, Emily Maitlis, Bill Neely, Phil Packer, Sir Steve Redgrave CBE, Andy Scott, Roger Taylor OBE, Professor Gaetano Thiene, Gregor Townsend MBE, David Walliams, Matt Wells, Ray Wilkins MBE and Sir Clive Woodward OBE

Sir Ian Botham OBE Honorary President of CRY “It is not just athletes who are at risk of these heart disorders – it can happen to anyone.

The problem has been swept under the carpet for too long and there have been too many excuses. I am a parent and a grandparent and I want to know that my kids and grandkids will be screened as a matter of course. It’s the only way we can prevent these sudden deaths occurring.”

Our Fundraisers The involvement of our fundraisers has been crucial to helping CRY raise awareness about YSCD. By fundraising for CRY our supporters have, in addition to highlighting our cause, helped to finance and develop our Bereavement Support service, the CRY Centre for Cardiac Pathology (CRY CCP) at Royal Brompton Hospital, the CRY Centre for Inherited Cardiovascular Conditions and Sports Cardiology at St. George’s Hospital and the CRY Surgery Supporters Network (CRY SSN) to support young people living with potentially lethal cardiac conditions. CRY has also required funding to support medical research into YSCD, to subsidise and expand our national screening programme, our education programme and our campaign for ECG testing of the nation’s youth.

Whether you are carrying out your own activity or taking part in an organised event such as the Virgin London Marathon or the BUPA Great North Run, remember that CRY will always support your effort with posters, literature, sponsor forms and other resources.

To read the supportive quotes from CRY’s Patrons in full please go to www.c-r-y.org.uk/patrons.htm

If you would like to join our fundraisers, CRY also offers a range of free fundraising challenge events, including parachute jumps, white water rafting and a selection of trekking and cycling events. For more information visit www.c-r-y.org.uk/free_ fundraising_events.htm or contact the CRY office to request a fundraising ideas pack.

There are many different ways you can donate to CRY. Online and cheque donations are the most popular methods, and we can also accept credit card donations over the phone.

For further information telephone 01737 363222 or go to: www.c-r-y.org.uk/donate.htm All your help is greatly appreciated.

CRY is always extremely grateful for grants or donations from Trusts and Foundations. We would like to thank the following Trusts and Foundations for the very generous support they have given us: ABBA Trust • Albert Hunt Trust • Artie White Foundation • Aspen Insurance UK Charity Committee • Charlotte Marshall Charitable Trust • Sir Cliff Richard Charitable Trust • Edward Joseph Colclough Trust • Fitton Trust • Gordon Fraser Charitable Trust • Gwyneth Forrester Trust • Hasluck Charitable Trust • Holbeck Charitable Trust • Hospital Saturday Fund Charitable Trust • James Tudor Foundation • Malcolm Chick Charity • Miss W E Lawrence 1973 Settlement • Munro Charitable Trust • Muriel Edith Rickman Trust • Shuttlewood Clarke Foundation • Sir James Roll Charitable Trust • Sir Jules Thorn Charitable Trust • Tudor Foundation, Inc.