European Patient Group Directory / Third edition 2009-2010

Page 147

GASTRO-INTESTINAL /

European Ostomy Association (EOA) http://www.ostomyeurope.org President: Arne Holte

c/o Deutsche ILCO Thomas Mann Strasse 40 53111 Bonn Germany

T: 0049-(0)-228-338-894-50 F: 0049-(0)-228-338-894-75 Email: info@ilco.de

A non-profitmaking, non-political, and religiously neutral organisation concerned only with the health and welfare of ostomates. Run by ostomates, and represents their viewpoints at European level. Distributes information and exchanges experiences, supports efforts to improve standards in ostomy care, and helps to found new national ostomy associations.

Geographic remit: Mainly Europe.

The Charter of Ostomates’ Rights is a very valuable document. The Charter tells clearly what needs the ostomate has, and it tells what services we want governments to give us. If you, as an ostomate, do not get this kind of service, you have work to do in your country.

Annual funding / income (most recent): Pharmaceutical funding: Non-pharma funding: ConvaTec. Membership fees. Number of members: 32 member organisations from 28 European countries (plus several from non-European countries). Countries of members: Austria, Belgium, Bulgaria, Croatia, Czech Republic, Denmark, Estonia, Finland, France, Germany, Hungary, Iceland, Italy, Latvia, Lithuania, Luxembourg, Netherlands, Norway, Poland, Portugal, Romania, Serbia and Montenegro, Slovakia, Slovenia, Spain, Sweden, Switzerland, UK. Number of full-time employees: Number of volunteers: Affiliations: International Ostomy Association (IOA).

EUROPEAN PATIENT GROUP DIRECTORY, 2009-2010 © BURSON-MARSTELLER / PATIENTVIEW

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