Pink Science - Autumn 2012

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PINKSCIENCE BREAST CANCER CAMPAIGN MAGAZINE / AUTUMN 2012

TAKE ACTION!

Find out how you can get involved in Breast Cancer Awareness Month

IMPROVING TREATMENT

How one of our grantsupported projects could hold the key to more effective chemotherapy

TIME TO REMEMBER We celebrate the lives of two of our most inspiring supporters

PLUS

Your letters and pictures, Girls vs Boys, the latest policy news and diary

Cancer made me realise I wanted more from life YOUR SUPPORT IS HELPING FUND RESEARCH INTO TREATMENT CHOICES AND FERTILITY

GET TO KNOW US OUR MISSION

£40 million

Everything we do at Breast Cancer Campaign is focused on one thing: beating breast cancer. The charity is bringing its unique community of supporters, scientists and those touched by breast cancer closer through a new way of thinking: Pink Science. It sums up the charity’s pioneering approach to breast cancer research, which identifies and funds the research projects with the greatest potential to save and improve lives – and, ultimately, find a cure for breast cancer.

Today, the charity supports 92 research projects, with combined funding of almost £16 million, in 36 centres of excellence across the UK and Ireland. All our donations come from the fundraising efforts of people like you – thank you. Over the past 16 years, the charity has awarded 367 grants with a total value of £40 million to universities,

medical schools and research institutes. And the figures are rising.

UNDERSTANDING PINK SCIENCE We chose a jigsaw piece as our logo because it symbolises the missing piece of the puzzle that is the cure for breast cancer. Everyone can be part of Pink Science; not just the scientists whose work we fund but also our supporters and, of course, those touched by breast cancer.

12,000

women who die from breast cancer every year

80%

of women diagnosed with breast cancer today will still be DOLYH LQ ¿YH \HDUV

1 in 8

chance a woman will get breast cancer in her lifetime

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WHAT DO THE PINK ICONS MEAN? Pink Science covers every aspect of breast cancer research. Its eight themes Prevention mirror the cancer journey, making Pink Science accessible and relevant to all. Treatment

47,700

women diagnosed with breast cancer every year

years between screening invitations for women aged 50 to 70

Emotional

Education

TO FIND OUT MORE PLEASE VISIT OUR WEBSITE BREASTCANCERCAMPAIGN.ORG OR CALL OUR SUPPORTER CARE TEAM ON 020 7749 4114

Biology

Genetics

Diagnosis

Growth

JOIN OUR FACEBOOK GROUP OR FOLLOW US ON TWITTER @BCCAMPAIGN

340

men diagnosed with breast cancer every year – it proves fatal for around 80

Figures relate to UK and are correct at time of going to press

HOW WE SPEND YOUR MONEY

TOTAL WE HAVE AWARDED IN GRANTS TO FUND BREAST CANCER RESEARCH IN THE PAST 16 YEARS

BREAST CANCER FACTS

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Inside this issue 04-11 Notebook Find out how you can get involved in Breast Cancer Awareness Month, including this year’s Big Pink Jump. Plus, our latest news and policy updates

12-13 Fundraising

WE CAN ALL BE PART OF THE CURE Welcome to the Breast Cancer Awareness Month issue of Pink Science. This October we’re calling on everyone to turn awareness into action and BE PART OF THE CURE. From taking part in wear it pink to buying one of our Pink Picks – including items from Asda’s Tickled Pink and Debenhams’ Think Pink ranges, Zandra Rhodes and nails inc. – there are lots of ways to get involved. Thanks to your incredible support we have already granted £40 million to various research teams throughout the UK and Ireland. You can read about the work of Dr Jeremy Blaydes on page 14, and there’s an update from Dr Jo Morris, Dr Richard Grose and Dr Jenny Gomm on pages 16-17 – just a few examples of our pioneering breast cancer research. Also in this issue, we remember two friends of the charity, Emma Freeborn and Kirste Bowman, who both sadly passed away earlier this year. You can’t help but be inspired by the stories of these wonderful women on pages 24-25. As always, awareness and action remain critical in beating breast cancer. We can all BE PART OF THE CURE this October.

We meet Campaign super supporter Gerard Varin, who ran an incredible 806 miles from Derbyshire to Switzerland in the name of charity

14-17 Research Dr Jeremy Blaydes discusses his team’s research, which could hold the key to preventing resistance to chemotherapy. And we present a trio of scientists working towards a cure

18-23 Against the odds Read the miraculous story of Carly Gibson, who went on to have two children after being diagnosed with breast cancer, aged just 29

24-25 We remember We look at the lives of two of our most inspirational supporters, Emma Freeborn and Kirste Bowman

26-31 Pink pages Browse fab products in Pink Picks. Plus, your letters, a tasty treat, our gallery and key dates

Baroness Delyth Morgan Chief Executive, Breast Cancer Campaign

PINK SCIENCE is produced by Northstar (thisisnorthstar.com) for Breast Cancer Campaign. Project Editor Emma Barlow Deputy Project Editor Lisa Paul Designer Pippa Hester Group Project Editor Robin Swithinbank Group Art Director Matt Warner Group Production Editor Andy Tidball Production Manager Helen Craig Managing Director Mark Beazleigh. For Breast Cancer Campaign: 0HGLD 5HODWLRQV 2I¿FHU Isabel Monk

N OT E B O OK BREAST CANCER CAMPAIGN NEWS FROM AROUND THE UK

TIME TO TAKE ACTION

There are lots of ways to get involved in Breast Cancer Action Month…

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ctober has traditionally been the month we’ve called Breast Cancer Awareness Month, but this year we are repositioning it as Breast Cancer Action Month! We are calling on all of our supporters to take action to help us continue funding more groundbreaking breast cancer research. From wearing it pink with friends, to jumping out of a plane for The Big Pink Jump – there are so many ways that you can get involved and BE PART OF THE CURE. And this year’s wear it pink on 26 October is extra special as we celebrate its 10th anniversary. We’ve set our sights on raising £2 million, which will take the total raised to a whopping £25 million! So register today and wear it pink to work or school – or invite a group of your friends to come round and have a wear it pink Big Night In. To help make your wear it pink event a success, Mary Berry has shared her pink macaroon recipe with Pink Science readers – see page 29. And you can toast your fundraising efforts with Levi Roots’ special pink mocktail (opposite). Plus, don’t forget you can order your pink Breast Cancer Campaign vest from Damart – £4 from each sale will be donated to Campaign. With your help we can make 26 October the biggest wear it pink yet! BREASTCANCERCAMPAIGN.ORG

STAR SUPPORT Chris Cracknell, England Rugby Sevens player, wears it pink

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PAINT YOUR PINKIE PINK We’ve joined up with leading beauty brand nails inc. to produce a pink sparkly nail varnish to raise vital funds and awareness this Breast Cancer Action Month. We are asking everyone to follow model Poppy Delevigne (right) and paint their pinkie nail pink to show the world that they have been part of the action.

PRETTY IN PINK TV star Kate Thornton (below) models Damart’s vest – £4 from each one sold goes to Campaign

CAPED CRUSADERS wear it pink and join Breast Cancer Campaign’s community of scientists, supporters and breast cancer survivors – our superheroes

RASPBERRY & PINEAPPLE LEMONADE Start the party with a mocktail by Levi Roots Levi Roots can usually be found singing about his famous Reggae Reggae sauce, but this October he’s designed a mocktail recipe for your wear it pink Big Night In. Remember to ask your guests for a £5 donation – it’s never been more fun to raise money for Campaign...

Put 450g raspberries and 4tbsp of sugar in a bowl. Stir gently, cover and set aside for one hour. Transfer to a food processor and blitz to a purée. Push the mixture through a sieve, mix in the juice of 10 limes, 250ml pineapple juice and 1 litre soda water. Add sugar to taste and serve with ice.

Taken from ‘Sweet’ by Levi Roots, published by Mitchell Beazley

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JUMP INTO ACTION

Why not unleash your inner daredevil and take part in our Big Pink Jump for Breast Cancer Action Month

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HOW TO BE PART OF THE ACTION There is one small and important action we can all take this month Whether you help Paint the Town Pink, wear it pink, or Paint your Pinkie Pink this October, you will be part of our mass action to help beat

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FUNDRAISERS GO FOR IT

Whether running, walking, holding collections or fundraising events, our supporters know how to put the fun into fundraising. Here we say thanks to just a few of them

KARNIVAL SPIRIT The Nottingham group with their prize

AWARDS AT THE HOUSE OF LORDS

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e celebrated the inspiring work done by supporters and researchers at our sixth annual awards reception, which was held at the House of Lords in May. There were 14 winners in all, from individual fundraisers such as Kevin Hunt, who featured on the cover of the spring issue of Pink Science, to some of our corporate partners including Asda, Pentel and Vanish. Two groups were also presented with an award for their outstanding and continued support of Breast Cancer Campaign. Nottingham Karnival, Nottingham University’s student RAG group (above), have been supporting us for 16 years, and have raised more than £300,000. And the work of the Manchester and Salford Regional Group was also recognised. They’ve raised more than £44,000 so far. A big well done to everyone – we hope you enjoyed the night.

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THIS YEAR’S WINNERS ARE... FUNDRAISER OF THE YEAR

RESEARCH TEAM OF THE YEAR

Kevin Hunt

Dr Jeremy Blaydes and his team

RAG OF THE YEAR Loughborough Students RAG

OUTSTANDING CONTRIBUTION

WEAR IT PINK FUNDRAISER

Nottingham Karnival Manchester and Salford Regional Group

Veolia Environmental Services

COMMUNITY AMBASSADOR Shirley Hallam Sheila Weightman

REGIONAL GROUP Pink on Wight

SCHOOL OF THE YEAR Pembridge Hall School

CONTRIBUTION TO RESEARCH

OUTSTANDING CORPORATE PARTNERS

Campaign Tissue Bank

Asda, Pentel, Vanish

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THANK YOU The Order of Women Freemasons have donated ÂŁ150,000 to Campaign. Zuzanka Penn and Sylvia Major told Pink Science why they want to BE PART OF THE CURE

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ON YOUR MARKS... (Left) Celebrity supporters Chris Cracknell and Sarah Maxwell line up at the start line

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e had a brilliant day back in May when our supporters got WRJHWKHU WR WDNH SDUW LQ WKH ÂżUVW *LUOV vs Boys 5k race. It was a very close call, with both genders putting in a great effort, but it was the girls that came out on top. Congratulations! Simon Hughes MP (pictured right, with Delyth) supported the event.

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Who are the Freemasons? The Order of Women Freemasons is the oldest and largest Masonic organisation for women in this country. It was established in 1908 and works on the same lines as male freemasonry. Freemasonry is concerned with moral and spiritual values, and we like to do philanthropic things for national and local charities. How many members are there? We have 6,000 members in the United Kingdom, Australia, Canada, South Africa, Spain and Zimbabwe. They are grouped into over 300 Craft Lodges operating under a Grand Master and Grand Lodge.

Is there a ‘typical’ member? There isn’t a typical type of person and they come from all walks of life. This is one of the nicest aspects of freemasonry – we welcome women of any race or faith. You can apply to join us on our website. Why Breast Cancer Campaign? As a female organisation, one in eight of us will get breast cancer, and we all know people who have been affected by this disease. We wanted to help women in the future – we’d urge other groups to do the same. 7R ÂżQG RXW PRUH DERXW 7KH 2UGHU RI :RPHQ )UHHPDVRQV YLVLW RZI RUJ XN

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Dedication

A HOME RUN FOR RESEARCH At Breast Cancer Campaign we are lucky to have the support of extraordinary people like Gerard Varin. He went the extra mile – or 806 to be exact – in a mighty run across Europe, from his hometown in Derbyshire to his place of birth in Switzerland

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erard Varin knew a number of women who had breast cancer, and had been thinking about how he could help. But it was after one of his closest friends, Tracey Williams, was diagnosed that Gerard knew he had to do something. But rather than raise funds by signing up for a marathon or local running event, this father of four set his own challenge. He decided to run ‘Home to Home’ – a staggering 800-mile trip through Europe, from KLV KRPH LQ 'XIÂżHOG LQ 'HUE\VKLUH WR the village of Seleute in Switzerland, where he was born. Gerard said goodbye to his wife Helen and four children and set off on 1 April, with the aim of completing his challenge in only one month. Tracey, who inspired the trip, said: ‘I was really poorly, and Gerard

said that he felt helpless when he couldn’t make me feel better. So he decided to raise as much money as he could.’ Gerard ran most of the journey alone but was joined occasionally by family and friends, and by others who had heard about his challenge and wanted to show their support for Gerard and the cause. Members of the Round Table helped by offering free accommodation along the way, and chartered physiotherapists volunteered to be on call whenever he needed them. Gerard arrived at the village of Seleute one month later, on 1 May – he had completed the equivalent of a marathon a day and raised more than ÂŁ35,000 for the charity. Gerard told Pink Science: ‘It was hard to believe that after 31 days I’d

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iron man Gerard ran the equivalent of a marathon a day on his incredible journey from Derbyshire to Switzerland

BE PART OF THE CURE Whether you want to run one mile, or 800 like Gerard, there’s an active fundraising event for everyone. For inspiration, visit breastcancercampaign.org and click on BE PART OF THE CURE

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DFWXDOO\ ¿QLVKHG 7KHUH ZHUH times I thought I couldn’t run another day, but I received tremendous support both at home and from people I met along the way, which kept me going, especially at the lowest times.’ ‘I’m glad to have raised all this money for Breast Cancer Campaign, but now I really appreciate having the time to put my feet up and relax!’ he told us. And Tracey is clearly very proud of her friend, who went more than the extra mile. ‘The money he has raised will do so much for the hundreds of women diagnosed with breast cancer every day,’ she said. ‘He’s done a spectacular job.’ To read more about Gerard’s H[WUDRUGLQDU\ FKDOOHQJH RU ¿QG RXW how to donate, visit his website – anglo-suisse.net

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RESEARCHING THE CURE

Working together for winning results DR JEREMY BLAYDES AND HIS TEAM COULD HOLD THE KEY TO STOPPING PATIENTS’ RESISTANCE TO CHEMOTHERAPY

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ased at the Cancer Sciences Unit Dr Blaydes’ team has tested how integral at the University of Southampton, CtBPs are to chemotherapy. ‘We found if you Dr Jeremy Blaydes and his team take away the CtBPs from breast cancer cells (pictured opposite) absolutely know and then combine that with chemotherapy, the value of working together. breast cancer cells die much more quickly,’ ‘Increasingly in science we are working he explains. ‘Chemotherapy damages DNA collaboratively,’ says Dr Blaydes, ‘because but CtBPs keep these cells with DNA if you’ve got something that you think is going damage alive,’ he continues. to make a difference, you work with the people This groundbreaking work is an example of who are going to make that happen.’ the sort of project that might not be possible We celebrated this in May when they without funding from Breast Cancer Campaign. were named Breast Cancer Campaign’s ‘Campaign has just been fantastic in backing Research Team of the Year 2011 us,’ Dr Blaydes says. ‘We didn’t at our annual awards reception really know where our research held at the House of Lords. was going to go and the funding This prize-winning team has from Campaign has taken us WE’RE DOING completed two three-year grants through to where we are now.’ SOMETHING from Breast Cancer Campaign The team is currently focusing THAT IS GOING on ways to split these conjoined and is now in the midst of its third. All of the research has focused CtPBs apart using potential lead TO MAKE LIFE on molecules called C-terminal compounds – or drugs. When BETTER FOR binding proteins (CtBPs). Science visited them in PATIENTS WITH Pink CtBPs are found in all cells, but the lab, the team had just made BREAST Dr Blaydes has discovered they something of a breakthrough. CANCER become particularly important ‘We make CtPBs so they are in cancer cells. ‘We know that in present on their own and then cancer cells a type of molecule we add the metabolite, which called a metabolite makes these makes them pair up,’ says CtBPs come together in pairs, which actually Dr Blaydes. ‘We’ve just discovered that when helps cancer cells to grow and survive,’ he says. we add our drug, those pairs break up again, Dr Blaydes had a background in CtBPs which is very exciting to see.’ before moving to Southampton in 2000 to It’s a really important result, and takes the set up a research group. He hopes the work team a step closer to improving breast cancer they are doing could play a major part in treatment. ‘The goal is always to try to make solving one of the biggest problems in a difference, and we’re trying to do something treating breast cancer – patients developing that is going to make life better for patients a resistance to chemotherapy. with breast cancer,’ Dr Blaydes says. ‘There Chemotherapy is an extremely important are many areas we could work on but we’ve treatment for many types of breast cancer, made a decision and now we have to go for it. but for around 40 per cent of patients it ‘I’m pretty convinced so far with what we’ve eventually ceases to be effective. done that we’re on the right track.’

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Photography: Charlie Campbell

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Dr Jeremy Blaydes and his team were named Campaign’s Research Team of the Year 2011

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RESEARCH UPDATE We look at a trio of scientists whose groundbreaking work is supported by funding from Breast Cancer Campaign

SPREAD OF BREAST CANCER

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NAME: Dr Jo Morris spEcialt y: Breast Cancer Predisposition UNIVERSITY: University Of Birmingham RESEARCH: BRC gene mutations

BRCA1 CELL DEVELOPMENT

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he discovery of BRCA mutations and the part they play in inheriting an increased risk of breast cancer has been revolutionary, but there’s a lot to learn about how these mutations increase the risk of breast cancer. Dr Jo Morris is an expert in BRCA gene mutations and has received funding from Campaign since 2006, when she was awarded a prestigious fellowship grant. Now Dr Morris and her team are focusing on one of the most common mutations in the BRCA1 gene – a mistake in a piece of protein called ‘RING’. All previous studies into how this mistake in RING might cause breast cancer have been inconclusive. So Dr Morris will be modifying normal, non-cancerous breast cells in the lab so they produce the mutated BRCA1 protein. This resource will not just support Dr Morris’s research but will enable researchers to study how the BRCA1 RING controls the way in which breast cancer cells respond to therapies, and could even lead to the development of new treatments.

£40 MILLION

is the total amount that we have awarded in grants throughout the UK and Ireland so our scientists can BE PART OF THE CURE

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he trillions of cells in our bodies talk to each other all the time so they know when to grow, move and mature. They do this by using signalling molecules, such as Fibroblast Growth Factors, which work by binding to cell surface receptors. One such surface receptor is FGFR1, and it’s these, and their effect on breast cancer cells, that Dr Richard Grose is investigating. His research has found an entirely new way that FGFR1 can signal in breast cancer cells – a part of the receptor is not acting at the cell surface but is rather moving inside the cell. He has shown how this changes the level of different proteins and actually controls the movement and spread of cells in breast cancer. Now Dr Grose is aiming to continue his work by investigating what controls this portion of FGFR1 moving inside the cell, and how the genes that FGFR1 switch on contribute to the movement of breast cancer cells. It could lead to new ways of treating breast cancer, and possibly prevent breast cancer from spreading.

NAME: Dr Richard Grose spEcialty: Cancer Cell Biology UNIVERSITY: Barts Cancer Institu te RESEARCH: Fibroblast Growth Fac tors

367 GRANTS

have been awarded to some of the UK’s leading scientists, which has enabled us to improve our understanding of breast cancer

48,000 PEOPLE

are diagnosed in the UK each year, which is why we must continue to invest in groundbreaking UHVHDUFK WR ¿QG D FXUH

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I dealt with having cancer because the fear of not having any children was much worse

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WORDS Emma Barlow PHOTOGRAPHY Charlie Campbell

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For young women like Carly Gibson, one of the hardest things about having breast cancer is coming to terms with its effect on their fertility

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f, in 2004, someone had told Carly Gibson that in eight years’ time she would not only be alive and well but also married with two beautiful children, she wouldn’t have believed them. Back then, life for Carly had taken a bad turn. Aged only 29, she found a small lump, and was diagnosed with ER+, HER2+ breast cancer. ER+ or oestrogen receptor positive breast cancers are stimulated to grow and spread by the hormone oestrogen, which attaches to receptors on the surface of cancer cells. Carly’s cancer was also HER2 positive, meaning the cells had extra copies of the protein HER2 which stimulated her cancer to grow even more. ‘My world was absolutely ripped apart,’ says Carly, who lives near Bristol. ‘I was nearly 30 years old and moving back in with my Mum and Dad, my boyfriend had left me and I had cancer – everything was awful.’ Like the thousands of young women diagnosed with breast cancer every year, Carly worried about the future DQG PRUH VSHFLÂżFDOO\ DERXW ZKHWKHU VKH ZRXOG EH able to have children. &DUO\ÂśV GRFWRUV UHFRPPHQGHG ZDLWLQJ ÂżYH \HDUV DIWHU being treated for breast cancer before getting pregnant, to ensure the treatment had been successful and the cancer wouldn’t come straight back. For Carly this would mean waiting until her late 30s, and, because of the hormone-blocking treatments used to treat her ER+

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cancer, there was a chance of her body starting an early menopause. ‘I dealt with having cancer because the fear of not having any children was much worse,’ Carly explains. ‘That seemed more hopeless than the cancer coming back. It sounds crazy but that’s how I felt.’ Fertility and breast cancer is an area that has recently become a focus of Campaign’s research. A study by Professor Ros Corney (see page 23) has investigated the psychological effect it can have on women. Reassuringly, evidence has shown that becoming pregnant after being treated for ER+ breast cancer does not reduce a woman’s chances of long-term survival.

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arly underwent a lumpectomy and had her lymph nodes removed – and it was a huge relief to ¿QG WKDW WKH FDQFHU KDGQœW VSUHDG 7KH GRFWRUV prescribed anti-oestrogen drugs tamoxifen and Zoladex (which work by blocking oestrogen from attaching to the receptors, and suppressing the body’s production of oestrogen, respectively) as well as radiotherapy

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HAPPY FAMILY Carly thought she may never have children after being diagnosed with ER+ breast cancer

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and chemotherapy for Carly. The recommendation of chemotherapy was yet another blow as it meant there ZDV D VLJQLÂżFDQW FKDQFH WKDW VKH ZRXOG QRW EH DEOH WR have children at all. ‘It was a wake-up call. I suddenly thought, what have , EHHQ GRLQJ" , KDG SXW P\ FDUHHU ÂżUVW Âą , ZDV DQ HYHQWV manager and always busy – and I could feel the life I wanted slipping away,’ Carly says. So after a lot of discussion with her family and her doctors, Carly made up her mind. She would not get the chemotherapy but agreed to have Zoladex and WDPR[LIHQ IRU ÂżYH \HDUV DQG H[WUD UDGLRWKHUDS\ Then came some positive news. She met Chris Gibson in May 2005 and by Christmas 2006 the couple had moved to Portugal. ‘We quit our jobs and had some WLPH RXW , KDG ÂżQLVKHG P\ UDGLRWKHUDS\ EXW KDG WR KDYH =RODGH[ LQMHFWLRQV LQ 3RUWXJDO , Ă€HZ KRPH IRU FKHFN XSV but other than that I was so happy and healthy.’ The couple were married in October 2007 and, before WKHLU KRQH\PRRQ &DUO\ Ă€HZ KRPH WR VHH KHU RQFRORJLVW ‘I said, “I know we agreed I’d have the hormone WUHDWPHQWV IRU ÂżYH \HDUV EXW DFWXDOO\ , GRQÂśW WKLQN I want to!â€? They were really good about it,’ she says. But the doctors were not sure how her body would react to having a baby. They told her that it could take

WHAT IS OESTROGEN RECEPTOR POSITIVE CANCER? How a normal breast tissue cell compares to an ER+ breast cancer cell

NORMAL CELL This is a view of a normal breast tissue cell. Oestrogen latches on to oestrogen receptors and sends signals to the cell nucleus OESTROGEN RECEPTOR POSITIVE (ER+) BREAST CANCER CELL In an ER + breast cancer cell there are more of these receptors so more signals are sent to the nucleus, which encourages the cancer cell to survive and multiply KEY Oestrogen

NORMAL

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Oestrogen receptor Signal

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THROUGH THE GENERATIONS Carly’s mum Pat and daughter Lydia will always know of the risk of breast cancer

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up to a year for the hormones to settle down and were seriously concerned the cancer could then come back. But Carly weighed up the risks, and by the time she and Chris returned from their honeymoon, she was pregnant.

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fter Lydia was born in 2008, Carly took her into the hospital in Bristol where she had been receiving treatment. ‘That was really emotional,’ she says. ‘All the nurses came over crying and I was crying. It was a really special thing.’ The doctors were still concerned, and Carly very nervously agreed to have a mammogram soon after the birth. Thankfully, she was clear – the cancer hadn’t come back. So the time had come for Carly to resume her treatment. But, she had other ideas. ‘I wanted another baby!’ I’VE BEEN she explains. ‘I thought I might not get to THROUGH see Lydia grow up, so she would SO MUCH – need someone else.’ I KNOW HOW Just 12 months after Lydia was born, Carly gave birth to IMPORTANT DOING MORE Rowan. It was not easy and, after she went back on tamoxifen RESEARCH IS and Zoladex, life didn’t get much FOR WOMEN EHWWHU Îź7KH ÂżUVW \HDU RI 5RZDQÂśV life is just a blur if I’m honest – all LIKE ME the hormones, two babies – and I knew how lucky I was but I GHÂżQLWHO\ GLGQÂśW IHHO YHU\ OXFN\ Âś

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oday, two and a half years after Rowan’s birth, Carly is 37 and has received the all-clear. She only has to visit the hospital every 12 months. But after all the hormone treatment, her body has entered the early stages of the menopause. If she’d waited until now to have the children, it would have been too late. ‘I look back on it and I think, “was I a bit silly?� But I just knew that I wanted children – I wanted that life,’ says Carly. ‘She’s been through so much,’ says Carly’s mum, Pat. ‘And she does get a bit down, but I just have to say, “Look what you’ve got now�.’ ‘I know I’m the luckiest woman in the world,’ says Carly. ‘But I’ve been through so much and I know how important it is that more research is done for young women like me. I don’t want my daughter, Lydia, to ever have to worry about not being able to have children. Or about getting to see her children grow up.’

BE PART OF THE CURE Thanks to your support, our research is helping young women with breast cancer like Carly. To BE PART OF THE CURE, visit breastcancercampaign.org

XXXXXX

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00

PROFESSOR ROS CORNEY

HELPING YOUNG WOMEN WITH BREAST CANCER

A

lthough rarer in young women, breast cancer can develop at any stage in a woman’s life. When it does, it leaves a lot of young women, like Carly, not only having to come to terms with having the disease but also worrying about whether or not they will be able to have children in the future. Professor Ros Corney from the School of Psychology and Counselling at the University of Greenwich is an expert in health psychology. With funding from Breast Cancer Campaign, she has been studying the psycho-social issues faced by young women with breast cancer who haven’t had children. Professor Corney interviewed 20 women who were aged between 20 and 41 when they were diagnosed with breast cancer. In some instances she also spoke to the women’s partners. She found that most of the women were worried about fertility, especially those who were not using assisted reproductive techniques (ARTS) such as freezing eggs or embryos to use in IVF later. Her study found that the emphasis placed on fertility issues varied considerably from hospital to hospital, and many of the women felt they had not been given adequate information on the impact their treatments could have on fertility. Single women in the group were even less likely to have their fertility needs considered. Only 11 of the women were asked by health professionals if they would like to undergo ARTS. And nearly all of the women worried if pregnancy could make their cancer come back, and whether their children would have a higher risk of getting cancer. At the end of her study, Professor Corney made some key recommendations including separate consultations focusing on IHUWLOLW\ OHDÀHWV IRU \RXQJHU ZRPHQ RQ DOO aspects of breast cancer and routine counselling for young women with the disease. It’s clearly an area where more work needs to be done. At Campaign, we hope to support more vital research like Professor Corney’s in the future.

BREASTCANCERCAMPAIGN.ORG

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FA M I LY M AT T E R S

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We remember

THEIR LEGACY LIVES ON

inspiring Emma was not DIUDLG WR ¿JKW IRU what she needed

EMMA FREEBORN: In February this year we lost two of our most ALWAYS AN INSPIRATION inspiring supporters. mma (above) was diagnosed with HER2 positive breast cancer when she was just 27 and she had a Emma Freeborn and ¿JKW RQ KHU KDQGV IURP WKH VWDUW 7KH μSRVWFRGH ORWWHU\¶ Kirste Bowman were both PHDQW WKDW QRW DOO FDQFHU SDWLHQWV ZHUH JHWWLQJ WKH diagnosed with breast WUHDWPHQWV WKH\ QHHGHG EXW WKLV ZDVQ¶W JRLQJ WR VWRS cancer in 2005, but this was (PPD 7KURXJKRXW KHU LOOQHVV (PPD ZDVQ¶W DIUDLG WR ¿JKW QRW IRU ZKDW VKH ZDQWHG EXW IRU ZKDW VKH QHHGHG not enough to stop either (YHQ ZKHQ VKH ZDV GLDJQRVHG ZLWK VHFRQGDU\ EUHDVW woman from continuing FDQFHU D \HDU DIWHU KHU RULJLQDO GLDJQRVLV (PPD GLG QRW OHW LW KROG KHU EDFN 6KH JRW PDUULHG WR ER\IULHQG with their busy lives 'DYH WUDYHOOHG DQG EHFDPH D WUXO\ LQVSLUDWLRQDO and raising money and ¿JXUH VSHDNLQJ DW HYHQWV RQ EHKDOI RI %UHDVW &DQFHU awareness for Campaign &DPSDLJQ DQG VSUHDGLQJ WKH PHVVDJH WKDW UHVHDUFK

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happy Kirste with husband John and at Run to the Beat

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FA M I LY M AT T E R S

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25

KIRSTE BOWMAN:

RUNNING ALL THE WAY

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OLYMPIC TORCH BURNS FOR KIRSTE

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QXPEHU RI RXU %UHDVW &DQFHU &DPSDLJQ supporters were torchbearers in the 2012 Olympic Torch relay–and Kirste should have EHHQ RQH RI WKHP ,QVWHDG KHU KXVEDQG -RKQ %RZPDQ FDUULHG WKH WRUFK RQ KHU EHKDOI +H told Pink Science what it meant to him:

“

$IWHU KHU EUHDVW FDQFHU GLDJQRVLV LQ .LUVWH ZDV GHWHUPLQHG WR UDLVH PRQH\ IRU &DPSDLJQ¶V UHVHDUFK DQG DOVR UDLVH DZDUHQHVV RI WKH GLVHDVH +HU UXQQLQJ IXQGUDLVLQJ DQG GHGLFDWLRQ WR WKH FKDULW\ ZHUH IDQWDVWLF DQG , ZDV YHU\ SURXG WR FDUU\ WKH 2O\PSLF WRUFK LQ KHU SODFH ,W ZDV FHUWDLQO\ DQ HPRWLRQDO GD\ EXW DOVR DQ LQFUHGLEO\ VSHFLDO KRQRXU DQG D ORYHO\ ZD\ WR UHPHPEHU .LUVWH DQG DOO RI WKH IDQWDVWLF ZRUN WKDW VKH GLG WR UDLVH DZDUHQHVV RI DQG PRQH\ IRU %UHDVW &DQFHU &DPSDLJQ , KDG NQRZQ .LUVWH IRU \HDUV EHIRUH ZH JRW PDUULHG LQ DQG LW¶V QRW D SXQ ZKHQ , VD\ , DOZD\V KHOG D WRUFK IRU KHU 6KH ZDV D YHU\ VSHFLDO DQG LQVSLUDWLRQDO SHUVRQ ± WKH ORYH RI P\ OLIH ± , ZLOO QHYHU IRUJHW KHU

”

%UHDVW &DQFHU &DPSDLJQ VXSSRUWHUV $QGUHZ &UDLJ 6XH 'XQQLQJ &DWK\ %URZQ /HH +XEEDUG DQG +HOHQ +RSNLQVRQ DOVR FDUULHG WKH 2O\PSLF 7RUFK LQ WKHLU KRPH WRZQV &RQJUDWXODWLRQV WR \RX DOO DQG ZH KRSH \RX enjoyed the experience!

BE PART OF THE CURE If you’ve been inspired by Kirste and (PPD DQG ZRXOG OLNH WR JHW LQYROYHG YLVLW EUHDVWFDQFHUFDPSDLJQ RUJ

BREASTCANCERCAMPAIGN.ORG

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[

PINK PICKS

]

HAPPY SHOPPER

GET JUICY

POWER UP

SWEET DREAMS

This bright pink bag designed by Julien Macdonald will brighten up even the dullest of days

Satisfy your thirst with this delicious English Apple juice from Copella

Charge your phone or MP3 player on the go with the genius Pink Pebble Smartstick from Veho

Everything you need for a matching bedroom – bid.tv are selling this pretty-in-pink bed set in a bag

From £20, amazon.co.uk £1 donation to Campaign

£14.32, bid.tv £1.43 donation to Campaign

£2.50, asda.co.uk 80p donation to Tickled Pink

£1, asda.co.uk PepsiCo will donate £85,000 to Tickled Pink

Policy News Pink Picks

SPEND AND SAVE HIGH FASHION This brooch by Zandra Rhodes is as iconic and glamorous as the lady who designed it £30, adele-marie.com £3 donation to Tickled Pink

There’s never been a better excuse to splash out at the shops. Watch out for ‘pink picks’ like these and a contribution from your shopping will help Breast Cancer Campaign to fund life-saving research

TOP BUY Order your pink vest and help us celebrate 10 years of fantastic Damart support £16-18, damart.co.uk £4 donation to Campaign

PINKIE PINK

CUP OF LOVE

WALK ON SUNSHINE

BEJEWELLED

Bring a touch of glamour to this October’s wear it pink and paint your ‘pinkie’ pink with this nails inc. shade

Pour yourself a truly heartwarming drink in these pretty mugs with love hearts

Multipacks of Walkers’ delicious SunBites have gone all rosy for Tickled Pink

£2.50, call 01268 505 090 Ethos is donating £10,000 to Campaign this year

£1, asda.co.uk PepsiCo will donate £85,000 to Tickled Pink

Buy this gorgeous rhodiumplated pink crystal ribbon pendant and bid.tv will donate 99p to Campaign

£11, nailsinc.com £1 donation to Campaign BREASTCANCERCAMPAIGN.ORG

£9.99, bid.tv 99p donation to Campaign

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PINK PICKS

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27

DEAR DIARY

THINK PINK

SWEET CHARITY

PINK PERFECTION

Never miss a date with this beautiful leather-look personal organiser from Filofax

Tell the whole world exactly what you think about Think Pink with this fun T-shirt from Debenhams

Perfect with a cup of tea – special pink packs of Jaffa Cakes are supporting Tickled Pink

Buy this gorgeous London Treasures Pink Crystal Bracelet and bid.tv will donate ÂŁ1.49 to Campaign

ÂżORID[ FR XN ÂŁ2 donation to Campaign

ÂŁ12, debenhams.com ÂŁ4 donation to Think Pink

ÂŁ1, asda.co.uk 5p donation to Tickled Pink

ÂŁ14.99, bid.tv ÂŁ1.49 donation to Campaign

ROSE-TINTED

IN THE PINK

COMFORT FOOD

SWEET TOOTH

Write, doodle or draw with this gorgeous pink gel pen with black ink from Pentel

9DQLVK LV MRLQLQJ WKH ÂżJKW against breast cancer and supporting wear it pink once again with a donation of ÂŁ250,000

Mrs Crimble’s are donating an amazing £25,000 from sales of their Cranberry macaroons to Campaign

Indulge your sweet tooth with this rich milk chocolate to help raise money for Andi’s Fund

ÂŁ1.69, mrscrimbles.com 10p donation to Campaign

ÂŁ1.35, seedandbean.co.uk 13.5p donation to Campaign

ÂŁ2.99, pentel.co.uk 25p donation to Campaign

ÂŁ3-6, most supermarkets

BE PART OF THE CURE

FEELING ROSY

TIE IT UP

DRINK PINK

Shampoo and conditioner from celebrity hairstylist Andrew Barton

This cute lace bow jumper is available from Asda, and ÂŁ1 from every sale will go to Tickled Pink

Grab a bottle of Lucozade’s brand new pink lemonade drink to support Tickled Pink

ÂŁ6, asda.co.uk ÂŁ1 donation to Tickled Pink

ÂŁ1.99, asda.co.uk 10p donation to Tickled Pink

RU IRU WZR DVGD FR XN ÂŁ6,000 total donation to Tickled Pink

We’re grateful to all the companies and organisations who support Breast Cancer Campaign. For more products sold in aid of the FKDULW\ RU WR ¿QG out the details of stockists near you, please visit our product pages at breastcancer campaign.org

BREASTCANCERCAMPAIGN.ORG

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LETTERS

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YOUR POINT OF VIEW

We love it when you get in touch with your letters and questions, or to share your experiences. So here’s a pick of our favourites...

CHEQUE MATE

Q

We had a great attendance at our recent event and managed to raise ÂŁ2,000. It would be great if one of your team could come along and be presented with the cheque in person? Mr Bosworth, Kenilworth

A

Thank you for your amazing fundraising. We are always keen to meet and personally thank

our supporters who are helping to fund our groundbreaking research. But we are only one small LondonEDVHG RIÂżFH DQG GR QRW KDYH DQ\ ORFDO RU UHJLRQDO RIÂżFHV DQG VWDII :H GR KRZHYHU KDYH VRPH ZRQGHUIXO YROXQWHHUV ZKR FDQ IXOÂżO this sort of role and who do support our charity by attending cheque presentations. We will always try to ÂżQG D YROXQWHHU LI ZH FDQ

HOW CAN WE HELP?

Q

My company is planning to hold a fundraising event in October during Breast Cancer Action Month, and I’d like to obtain an information pack about workplace fundraising to help with ideas? Lisa, Runcorn Cheshire

A

We’re delighted to hear that you and your company are so keen to support us by fundraising in the workplace. At Campaign, ZH EHOLHYH WKDW HYHU\RQH FDQ BE PART OF THE CURE. We’re

a unique community of scientists and supporters dedicated to pioneering breast cancer research. October is a great WLPH WR JHW LQYROYHG DQG RQH of the best ways is by holding a wear it pink day on October 26. This is Campaign’s biggest IXQGUDLVLQJ HYHQW ZKHQ SHRSOH wear pink at work, school or home and make a donation to Breast Cancer Campaign. Visit wearitpink.co.uk to register. )XQGUDLVLQJ SDFNV ZLOO EH DYDLODEOH from early September.

WHY IS SPONSORSHIP SO HIGH?

Q

I’m interested in running the Bupa Virgin London Marathon 2013 for your charity as it is very closely linked with my family. Why is there a minimum sponsorship of £1,750 and what happens if I don’t raise enough? Lisa, Bournemouth

A

We set a minimum sponsorship OHYHO IRU D QXPEHU RI UHDVRQV )LUVWO\ ZH KDYH WR EX\ RXU SODFHV DW WKH PDUDWKRQ DQG QHHG WR FRYHU WKLV FRVW :H DOVR SD\ WR DGYHUWLVH

BREASTCANCERCAMPAIGN.ORG

RXU HYHQWV DQG JHQHUDWH DV PXFK support and awareness as possible. And, of course, Campaign relies RQ VLJQLÂżFDQW GRQDWLRQV WR IXQG research. We ask all runners to sign a fundraising pledge and to accept our terms and conditions to raise the minimum amount. We are here WR SURYLGH VXSSRUW SURPRWLRQDO materials and sponsorship forms. $QG GRQÂśW IRUJHW WKDW \RX KDYH D couple of months after the race has ÂżQLVKHG LQ ZKLFK WR FROOHFW WKH UHVW of your sponsorship.

FACEBOOK MILESTONE

In July, we were thrilled to reach our 400,000th ‘like’ on Facebook. To celebrate this milestone, we offered WR JLYH DZD\ IUHH SLQN ULEERQ HQDPHO pin badges to you, our supporters. 2YHU RI \RX UHTXHVWHG RXU SLQ badge, and we know you’ll be wearing them with pride. A huge thank you to all of you who FRQWULEXWH WR WKH FRQYHUVDWLRQV RQ RXU social networks. They wouldn’t be such a success without you, so here’s to more ’likes’ in the future.

GET IN TOUCH WRITE TO US AT: Breast Cancer Campaign, Clifton Centre, 110 Clifton Street, London EC2A 4HT

CALL supporter care: 020 7749 4114

EMAIL US AT: info@breastcancercampaign.org

visit OUR WEBSITE: breastcancercampaign.org/aboutus

TWEET US: @BCCampaign

FACEBOOK AT: facebook/breast cancercampaign

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G A L L E RY

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1

Taking part

CHARITY STARS

You’ve been busy fundraising, and we’d like to say thank you 1 AET Swim School and Tamworth Life Saving Club swam the length of the English Channel in their pool to raise more than £1,700. 2 The Stowmarket and North Tyneside regional groups walked Hadrian’s Wall, raising £1,000. 3 9LFFL &ROH 7LQD 2OG¿HOG DQG $LPHH &ROH UDLVHG on their Snowdon challenge. 4 Marie McPherson trekked Kilimanjaro, raising £5,000. 5 Noble Fuels staff walked from Saltburn by the Sea to Whitby Abbey, raising almost £1,600. 6 Lin Pelling’s annual Pink Tractor Road Run raised £2,500. 7 Mike King’s team walked the Yorkshire Three Peaks, raising over £6,000. 8 Nikki Elmer ran the Severn Bridge to Wales and back, raising £300. Thank you!

2

3

8 7

4 6

5

BREASTCANCERCAMPAIGN.ORG

CT 26 O12 20

At work, at school or even on a nigh t in, people across the country will be coming together to wear something pink in the figh t against breast cancer. Hold a wear it pink day on 26 October and get ready to

be par t of the cure .

REQUEST YOUR FREE FUNDRAISING PACK TODAY AT:

wearitpink.co.uk

0800 107 3104

Breast Cancer Campaign is a charity registered by the Charity Commission for England and Wales (no.299758). wear it pink速 is a registered trademark.

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