Nelson Star, January 03, 2014

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Friday, January 3 • 2014

Vol. 6 • Issue 54

Two losses in a row for Leafs See Page 22

Local church receives new grand piano See Page 24

280 Baker Street Nelson BC (250)

354-4089

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Buying or Selling a Home?

Chilly start to the new year Laura Salmon Cell 250-551-8877

E-mail Laura@LauraSalmon.com Website www.LauraSalmon.com

RHC Realty

Each office independently owned & operated

It may have been the largest crowd ever — about 200 specators — for Nelson’s annual New Year’s Day Polar Bear Dip at Lakeside Park on Wednesday. Around 80 swimmers, young and old, gathered at the park, waiting for the signal to plunge into the chilly waters. Some rushed in, then right back out, while others lingered a little longer in the Kirsten Hildebrand photo cold water. For more on the dip, see page A2.

Rare illness causes treatment, funding difficulties for Nelson girl

Coping with conflicting diagnosis KIRSTEN HILDEBRAND Nelson Star Reporter

A girl living in Nelson is struggling with both an extremely rare illness and finding funds for her treatment. Katrina Fontaine, 26, has Ehlers Danlos Syndrome which is a genetic condition affecting the collagen in her body. Collagen makes up the body’s con-

nective tissue, which holds or “glues” the body together. “All my joints are quite weak,” says Katrina. “The connective tissue around my head isn’t working so my skull is actually sinking down onto my neck and compressing my brain stem. In the middle of my neck, it’s compressing my spinal cord and then at the base of the spine I have a fatty

HIPPERSON HARDWARE 395 Baker Street 250.352.5517

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tumour which is kind of tethering my spinal cord.” Because of these neurological issues, Katrina spends most days in bed either at home with her cat Elmo by her side — or in the hospital. She cannot eat because of difficulty swallowing and poor function of her stomach. The compression of her brainstem causes regulation problems with her

heart rate, blood pressure, and body temperature. And the compression of her spinal cord causes weakness, numbness and pain. “Any autonomic nervous system function you can think of is screwed up in me,” she says. “I can’t stand up Continued on Page 3

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