Fetal Alcohol Spectrum Disorders Action Summit

BLACK HAWK COLLEGE 6600 34TH AVENUE MOLINE, IL 61265-5899

Join national experts in the field of fetal alcohol spectrum disorders (FASDs) as they present the latest research and practices regarding prevention, diagnosis and strategies for living with the neurodevelopmental conditions associated with the use of alcohol during pregnancy.

This summit will highlight the impact that alcohol use during pregnancy has on the individual, families and communities.While the incidence of the more well-known fetal alcohol syndrome is approximately 1 in 1,000 births, there is a wide range of other neurodevelopmental health effects – FASDs – that can be caused by prenatal exposure to alcohol. The incidence of those effects is estimated to be as high as 1 in 100 births, making FASDs more common than autism or Down syndrome. Experts and community members will address this urgent problem.

Date: Time: Location: Room: Fee:

Friday, Sept. 26, 2014 8 a.m. to 3:45 p.m.

Black Hawk College, 6600 34th Avenue, Moline, Illinois 61265 Building 1, Room 306 (theatre) $25, $10 for students (must show student I.D.)

Meet Stephanie Trusty BSN, RNC, nurse clinician, maternal health consultant, Bureau of Family

Health, Iowa Department of Public Health, Des Moines, Iowa.

Major responsibilities: Management of Women’s and Perinatal Health Programs

Professional interest(s): Women’s and maternal health, family planning tobacco

cessation for women of reproductive age, patient quality safety, fetal alcohol

syndrome prevention, shaken baby syndrome prevention, SIDS prevention, public health 3:30–3:45 p.m.

Summary, Evaluations and Closing, Pam Davies and Val Koster

Professional Continuing Education, (7) CE credits for the State of Illinois will be awarded through Black Hawk College Professional and Continuing Education

and Nursing Department for nurses, nursing home administrators, social

workers, and physical therapists.

Professional Continuing Education, (7) CE credits will be awarded for

psychologists, therapists, counselors, occupational therapists, speech

pathologists and intervention specialists.

Contact: Ajeet Charate, MBBS, MA, LCPC, CADC Director, Neurofeedback,

Counseling and FASD Institute of Illinois. A Division of Trinity Services, Inc.

24 W. 500 Maple Ave., Suite 214, Naperville, IL 60540. Phone: 630-548-4501.

Registration deadline: Friday, Sept. 19 • For more information, call 309-796-8223.

Teachers may earn (7) CPDUs. To obtain CPDUs please contact Julie at the

Rock Island County Regional Office of Education at 309-736-1111 or

Julie.cox@RIROE.com to obtain approval. CPDU processing fee is $25.

AGENDA

Summit objectives

8–8:30 a.m.

Registration, Breakfast and Networking

Co-chairs: Valerie Koster and Pam Davies: Special thanks to the Iowa

Department of Public Health and Stephanie Trusty for their generous funding.

8:30–8:40 a.m.

Emily Travis, Welcome remarks and introduction of featured speakers 8:40–8:50 a.m.

8:50–9 a.m.

9–9:10 a.m.

Ajeet Charate, FASD Initiatives in Illinois Stephanie Trusty, FASD Initiatives in Iowa Dr. Christopher Boys, FASD Initiatives in Minnesota

9:10–10 a.m.

Brave New World: After 40 Years, What Do We Know About FASDs?

Keynote presenter: Dr. Leigh Tenkku, MPH, PhD, principal investigator of

the CDC’s Midwest Regional Fetal Alcohol Syndrome Training Center (MRFASTC)

Presentation will discuss what we have learned about fetal alcohol spectrum disorders since its identification by Ken Jones and colleagues in 1973 and what we need to know about FASDs that will drive identification, treatment and prevention in the future.

• Discuss current knowledge and emerging research regarding FASDs. • Describe the impact of prenatal alcohol exposure on the developing fetus.

• Describe how prenatal alcohol exposure affects the daily life of individuals across the life span.

• Describe current supports and strategies for care of individuals with FASDs.

Special thanks to the following sponsors for funding this summit and making it happen:

• Iowa Department of Public Health, Stephanie Trusty

• Black Hawk College QC Foundation

• Black Hawk College Professional and Continuing Education

• Intouch Adult Day and Home Care Services, LSSI, Moline, Illinois

• RICCA (The Rock Island County Council on Addiction)

Organizations participating include: NOFAS Illinois (National Organization on Fetal Alcohol Syndrome), MRFASTC (Midwest Regional Fetal Alcohol Syndrome Training Center), Fetal Alcohol Spectrum Disorders Program, Department of Pediatrics, University of Minnesota Medical School, Iowa Department of Public Health.

IDPH

Iowa Department of Public Health

For program information, contact: Pam Davies at Daviesp@bhc.edu or Valerie Koster at Kosterv@bhc.edu.

Registration contact: Black Hawk College Professional and Continuing Education, 309-796-8223.

Visit our website: www.bhc.edu/pace.

Meet Lerenda Travis

Lerenda and her husband adopted two children, Emily and Austin, the first of whom was showing evident signs of developmental delays. Her eldest child, Emily, was diagnosed with fetal alcohol syndrome at the age of one. After multiple doctor visits, Lerenda was finally confident her daughter’s newfound diagnosis was an answer to the multiple aliments that had arisen. Because of appropriate early interventions, Emily, now 22, is functioning beyond previously thought capabilities. Aside from being an “external brain” for Emily, Lerenda is an endodontic dental assistant and enjoys living on a family-owned farm.

2–2:50 p.m.

Through Fragile Beginnings Shines Hope: Living with Fetal Alcohol Spectrum Disorder

Presenter: Emily Travis, bachelor’s degree in psychology

Through my eyes and from my heart, I lead the audience through the day-to-day of what it means to live with FASD. This, despite what may appear to be a looming prognosis, does not mean a strategy doesn’t exist. With my mother as my “external brain” and because of divine intervention, through my weakness shines hope.

Meet Emily Travis Adopted with Native American roots, Emily Travis was diagnosed with fetal

alcohol syndrome at one year of age. As a spokesperson for the National

Organization on Fetal Alcohol Syndrome, Illinois affiliate, Emily travels

internationally, educating and advocating on behalf of this 100% preventable

pandemic. Recently, she was selected to serve as an expert panel member

for SAMHSA’s FASD Center for Excellence, and is currently conducting

university-funded research through the Canada FASD Research Center. Emily is

a founding member of Self-Advocates with an FASD in Action (SAFA) network.

This past December Emily graduated summa cum laude, ranking No. 1 in

the Mid-Continent University graduating class of 2013, earning her bachelor’s degree in psychology. She volunteers her time at a pregnancy crisis center as the director of Hispanic ministries and as a counselor. She plans to obtain a

post-doctoral certification in neuropsychology, using her degree to research the

very thing with which she has been diagnosed.

Emily has earned many pageant titles, including Miss Illinois Outstanding Teen

2008 for the Miss America Organization. Growing up on a farm, Emily is in love

with all things outdoors - including horseback riding - and is passionate about organics. Every year she travels to Monterrey, Mexico, where the kids of La Isla steal

her heart.

2:50–3:30 p.m.

Who We Are, What We Do, and Where Do We Go From Here?

Panel of featured guest speakers - Dr. Leigh Tenkku, Dr. Christopher Boys, Ajeet Charate, Joni Bosch and Stephanie Trusty

A panel will discuss how we can best serve the needs for both prevention and treatment of FAS/FASD in Iowa and Illinois and explore ways to better support caregivers of children with FAS/FASD.

Meet Dr. Leigh Tenkku

Dr. Tenkku is director for research, director of the doctoral program and

associate research professor in both the School of Social Work and in the

Masters of Public Health Program at the University of Missouri. She has more than

30 years of experience in design, implementation and evaluation of research

studies both in academic and community-based settings, completing her doctorate

in public health in 2007 at Saint Louis University. She is the principal investigator

on two large CDC-funded projects. The first grant is for the Midwest Regional Fetal

Alcohol Syndrome Training Center (MRFASTC), now in its 12th year of funding,

providing education and training on FASDs to medical and allied health

faculty and students in 19 states. The second grant focuses on the design of a

randomized controlled trial to test an intervention to decrease disruptive behaviors

and increase coping and problem solving skills for youth and young adults with

FASDs ages 16-25.

10–10:10 a.m.

Break 10:10–11:15 a.m.

The Impact of Prenatal Alcohol Exposure on the Developing Brain: Implications for Understanding and Treating FASD

Featured presenter: Dr. Christopher Boys, Ph.D., licensed psychologist, pediatric neuropsychologist, co-director, Fetal Alcohol Spectrum Disorders Program, Department of Pediatrics, University of Minnesota Medical School.

Presentation will address the overall neurocognitive profile associated with fetal alcohol spectrum disorders (FASD) and distinguish the disability from other common mental health diagnoses. Presentation will also address behaviors related to fetal alcohol spectrum disorders with an emphasis on executive functions and impulse control concerns.

Meet Dr. Christopher Boys

Dr. Boys is an assistant professor in the Department of Pediatrics. He is a pediatric neuropsychologist who completed his Ph.D. in educational psychology at the University of Minnesota. He also completed his clinical internship and post-doctoral fellowship in pediatric neuropsychology at the University of Minnesota Medical School.

He is currently the director of the Pediatric Psychology Program at the University of Minnesota, as well as the co-director of the University of Minnesota Fetal

Alcohol Spectrum Disorders Program. Dr. Boys has been involved with FASD since 2001. He completes diagnostic assessments and parent training to provide interventions for children affected by prenatal alcohol exposure.

His current clinical interests include fetal alcohol spectrum disorder, psychological

aspects of and adjustment to chronic medical illness (e.g.cystic fibrosis, diabetes,

PKU), developing adherence and self-care in children/adolescents with chronic

illness and consultation within health care settings. His research interests include

establishing a neurocognitive profile for FASD, neurodevelopmental outcome of

high risk and premature neonates, investigating and the neuropsychological

profile of early and continuously treated phenylketonuria (PKU).

11:15 a.m. to noon

Providing Integrated Care for Individuals on the Spectrum & Caregivers – What Works and What Doesn’t?

Presenter, Ajeet Charate, MBBS, MA, LCPC, CADC Director, Neurofeedback, Counseling and FASD Institute of Illinois, division of Trinity Services, Inc.

The latest research will be presented as to treatment and support of those affected

by FASDs. Ajeet will discuss QEEG-guided neurofeedback treatment for FASD

and many co-occurring conditions. QEEG analysis is a safe, non-invasive and

office-based assessment that helps creates a topographic map of the electrical

activity of the cerebral cortex. The map assists in identifying the primary issues

that the individual is suffering from and determines the treatment protocol for

neurofeedback trainings. Neurofeedback is a non-invasive and safe procedure

that helps self-regulate brain functioning. It offers a non-pharmacological

intervention for a variety of conditions. Ajeet talks with parents in regard to what

is not working correctly or developing correctly. He allows them to consider

deficient cognitive learning and what adaptations are needed.

Meet Ajeet Charate:

Ajeet, a physician from India with a master’s in clinical psychology from the

Illinois School of Professional Psychology, is a licensed clinical and professional

counselor, a certified alcohol and drug abuse counselor and a board-certified

neurotherapist. A member of the Advisory Council of the Midwest Regional Fetal

Alcohol Syndrome Training Center (MRFASTC), he serves as the Illinois State

Coordinator for the Illinois MRFASTC team. In addition, he represents Illinois at

the National Association of FASD State Coordinators and Building FASD State

Systems (BFSS). Ajeet is also director of the Neurofeedback, Counseling and

FASD Institute of Illinois, a division of Trinity Services, Inc., based in Naperville.

Ajeet has worked in the field of mental health for 13 years. Early on he was drawn to the plight of children and adults with Fetal Alcohol Spectrum Disorders.

He recognized a pervasive lack of awareness of the problem in the community at large and among health professionals at all levels. He also recognized that persons with FASD and their families have great difficulty finding appropriate services and supports in Illinois. In March 2011 he was instrumental in establishing services and supports in Naperville, Des Plaines and New Lenox. The center offers a wide range of services, including diagnosis and treatment options, for those affected by FASD and their caregivers. It also provides an ideal setting for researching effective interventions for those with the condition.

Noon to12:30 p.m.

Lunch provided.

12:30–1:10 p.m.

FAS Across the Lifespan

Presenter: Joni Bosch

FAS and FASD do not affect just children. Family life is affected as well. Schooling can be a problem. Children grow up. We need an understanding of how fetal alcohol exposure affects individuals across the life span and supports that may be useful.

Meet Joni Bosch

Joni works in both the Department of Genetics at the University of Iowa as well

as at the Center for Disabilities and Development there. She is a family

nurse practitioner and has a Ph.D. in educational psychology. Her particular

areas of interest are working with patients with behavioral problems and genetic disorders.

1:10–1:15 p.m.

Break

1:15–2 p.m.

Sharing Our Journey: Take a journey with parents whose children have been diagnosed with FASDs. They will share their trials and tribulations, joys and celebrations of daily living with their children.

Panel of parents: Pam Davies, Val Koster, Ginny Manske, Lerenda Travis, Hovey and Sara Tinsman

Meet Pam Davies: Pam received her bachelor’s degree from Western Illinois

University in psychology/counseling. While pursuing her master’s degree in

counseling, she met her husband, and together they realized their dream of

parenthood. Parenthood became a reality when they were blessed with their

4-year-old daughter from Russia. Pam is currently program coordinator for

Professional and Continuing Education at Black Hawk College. Pam was stirred

to action to co-chair this event in an effort to help the community better

understand FASD.

Meet Valerie Koster: Valerie earned her master’s degree from the University of Utah, specializing in Nurse-Midwifery and currently teaches nursing at Black Hawk College. Valerie received her trainers certificate from the Great Lakes FSAD Training Center at the University of Wisconsin-Madison. She has adopted two daughters from Peru. She is learning about FASDs while walking the journey with her 17-year-old daughter. In h er search for resources for her daughter she met Pam Davies.

Meet Ginny Manske: Ginny has spent all of her life working with children and

families. She became a foster parent in 1986 working with teenagers and in 1993

started taking care of children of all ages. She has parented fetal alcohol and

drug-exposed children both through the child welfare system and through adoption.

She currently is an adult trainer, teaching parenting classes to foster and adoptive

parents and early childhood classes to child care workers. She continues to

be active in social work with a passion for children and their families.

Meet Hovey and Sara Tinsman: Hovey and Sara are parents of three adopted

siblings from birth. All three were perfect babies developing well within typical

range. It wasn’t until they entered preschool and beyond that they all exhibited

behaviors and learning difficulties diagnosed as ADHD, ODD, SI, OMD and RDD. “Attending Diane Malbin’s workshop on FASD opened our eyes to new ways of working with and understanding our children as they have neurobehavioral

disabilities due to FASD. We have made some simple modifications, mostly internally,

and enjoy sharing our children’s successes.”

11:15 a.m. to noon

Providing Integrated Care for Individuals on the Spectrum & Caregivers – What Works and What Doesn’t?

Presenter, Ajeet Charate, MBBS, MA, LCPC, CADC Director, Neurofeedback, Counseling and FASD Institute of Illinois, division of Trinity Services, Inc.

The latest research will be presented as to treatment and support of those affected

by FASDs. Ajeet will discuss QEEG-guided neurofeedback treatment for FASD

and many co-occurring conditions. QEEG analysis is a safe, non-invasive and

office-based assessment that helps creates a topographic map of the electrical

activity of the cerebral cortex. The map assists in identifying the primary issues

that the individual is suffering from and determines the treatment protocol for

neurofeedback trainings. Neurofeedback is a non-invasive and safe procedure

that helps self-regulate brain functioning. It offers a non-pharmacological

intervention for a variety of conditions. Ajeet talks with parents in regard to what

is not working correctly or developing correctly. He allows them to consider

deficient cognitive learning and what adaptations are needed.

Meet Ajeet Charate:

Ajeet, a physician from India with a master’s in clinical psychology from the

Illinois School of Professional Psychology, is a licensed clinical and professional

counselor, a certified alcohol and drug abuse counselor and a board-certified

neurotherapist. A member of the Advisory Council of the Midwest Regional Fetal

Alcohol Syndrome Training Center (MRFASTC), he serves as the Illinois State

Coordinator for the Illinois MRFASTC team. In addition, he represents Illinois at

the National Association of FASD State Coordinators and Building FASD State

Systems (BFSS). Ajeet is also director of the Neurofeedback, Counseling and

FASD Institute of Illinois, a division of Trinity Services, Inc., based in Naperville.

Ajeet has worked in the field of mental health for 13 years. Early on he was drawn to the plight of children and adults with Fetal Alcohol Spectrum Disorders.

He recognized a pervasive lack of awareness of the problem in the community at large and among health professionals at all levels. He also recognized that persons with FASD and their families have great difficulty finding appropriate services and supports in Illinois. In March 2011 he was instrumental in establishing services and supports in Naperville, Des Plaines and New Lenox. The center offers a wide range of services, including diagnosis and treatment options, for those affected by FASD and their caregivers. It also provides an ideal setting for researching effective interventions for those with the condition.

Noon to12:30 p.m.

Lunch provided.

12:30–1:10 p.m.

FAS Across the Lifespan

Presenter: Joni Bosch

FAS and FASD do not affect just children. Family life is affected as well. Schooling can be a problem. Children grow up. We need an understanding of how fetal alcohol exposure affects individuals across the life span and supports that may be useful.

Meet Joni Bosch

Joni works in both the Department of Genetics at the University of Iowa as well

as at the Center for Disabilities and Development there. She is a family

nurse practitioner and has a Ph.D. in educational psychology. Her particular

areas of interest are working with patients with behavioral problems and genetic disorders.

1:10–1:15 p.m.

Break

1:15–2 p.m.

Sharing Our Journey: Take a journey with parents whose children have been diagnosed with FASDs. They will share their trials and tribulations, joys and celebrations of daily living with their children.

Panel of parents: Pam Davies, Val Koster, Ginny Manske, Lerenda Travis, Hovey and Sara Tinsman

Meet Pam Davies: Pam received her bachelor’s degree from Western Illinois

University in psychology/counseling. While pursuing her master’s degree in

counseling, she met her husband, and together they realized their dream of

parenthood. Parenthood became a reality when they were blessed with their

4-year-old daughter from Russia. Pam is currently program coordinator for

Professional and Continuing Education at Black Hawk College. Pam was stirred

to action to co-chair this event in an effort to help the community better

understand FASD.

Meet Valerie Koster: Valerie earned her master’s degree from the University of Utah, specializing in Nurse-Midwifery and currently teaches nursing at Black Hawk College. Valerie received her trainers certificate from the Great Lakes FSAD Training Center at the University of Wisconsin-Madison. She has adopted two daughters from Peru. She is learning about FASDs while walking the journey with her 17-year-old daughter. In h er search for resources for her daughter she met Pam Davies.

Meet Ginny Manske: Ginny has spent all of her life working with children and

families. She became a foster parent in 1986 working with teenagers and in 1993

started taking care of children of all ages. She has parented fetal alcohol and

drug-exposed children both through the child welfare system and through adoption.

She currently is an adult trainer, teaching parenting classes to foster and adoptive

parents and early childhood classes to child care workers. She continues to

be active in social work with a passion for children and their families.

Meet Hovey and Sara Tinsman: Hovey and Sara are parents of three adopted

siblings from birth. All three were perfect babies developing well within typical

range. It wasn’t until they entered preschool and beyond that they all exhibited

behaviors and learning difficulties diagnosed as ADHD, ODD, SI, OMD and RDD. “Attending Diane Malbin’s workshop on FASD opened our eyes to new ways of working with and understanding our children as they have neurobehavioral

disabilities due to FASD. We have made some simple modifications, mostly internally,

and enjoy sharing our children’s successes.”

Meet Lerenda Travis

Lerenda and her husband adopted two children, Emily and Austin, the first of whom was showing evident signs of developmental delays. Her eldest child, Emily, was diagnosed with fetal alcohol syndrome at the age of one. After multiple doctor visits, Lerenda was finally confident her daughter’s newfound diagnosis was an answer to the multiple aliments that had arisen. Because of appropriate early interventions, Emily, now 22, is functioning beyond previously thought capabilities. Aside from being an “external brain” for Emily, Lerenda is an endodontic dental assistant and enjoys living on a family-owned farm.

2–2:50 p.m.

Through Fragile Beginnings Shines Hope: Living with Fetal Alcohol Spectrum Disorder

Presenter: Emily Travis, bachelor’s degree in psychology

Through my eyes and from my heart, I lead the audience through the day-to-day of what it means to live with FASD. This, despite what may appear to be a looming prognosis, does not mean a strategy doesn’t exist. With my mother as my “external brain” and because of divine intervention, through my weakness shines hope.

Meet Emily Travis Adopted with Native American roots, Emily Travis was diagnosed with fetal

alcohol syndrome at one year of age. As a spokesperson for the National

Organization on Fetal Alcohol Syndrome, Illinois affiliate, Emily travels

internationally, educating and advocating on behalf of this 100% preventable

pandemic. Recently, she was selected to serve as an expert panel member

for SAMHSA’s FASD Center for Excellence, and is currently conducting

university-funded research through the Canada FASD Research Center. Emily is

a founding member of Self-Advocates with an FASD in Action (SAFA) network.

This past December Emily graduated summa cum laude, ranking No. 1 in

the Mid-Continent University graduating class of 2013, earning her bachelor’s degree in psychology. She volunteers her time at a pregnancy crisis center as the director of Hispanic ministries and as a counselor. She plans to obtain a

post-doctoral certification in neuropsychology, using her degree to research the

very thing with which she has been diagnosed.

Emily has earned many pageant titles, including Miss Illinois Outstanding Teen

2008 for the Miss America Organization. Growing up on a farm, Emily is in love

with all things outdoors - including horseback riding - and is passionate about organics. Every year she travels to Monterrey, Mexico, where the kids of La Isla steal

her heart.

2:50–3:30 p.m.

Who We Are, What We Do, and Where Do We Go From Here?

Panel of featured guest speakers - Dr. Leigh Tenkku, Dr. Christopher Boys, Ajeet Charate, Joni Bosch and Stephanie Trusty

A panel will discuss how we can best serve the needs for both prevention and treatment of FAS/FASD in Iowa and Illinois and explore ways to better support caregivers of children with FAS/FASD.

Meet Dr. Leigh Tenkku

Dr. Tenkku is director for research, director of the doctoral program and

associate research professor in both the School of Social Work and in the

Masters of Public Health Program at the University of Missouri. She has more than

30 years of experience in design, implementation and evaluation of research

studies both in academic and community-based settings, completing her doctorate

in public health in 2007 at Saint Louis University. She is the principal investigator

on two large CDC-funded projects. The first grant is for the Midwest Regional Fetal

Alcohol Syndrome Training Center (MRFASTC), now in its 12th year of funding,

providing education and training on FASDs to medical and allied health

faculty and students in 19 states. The second grant focuses on the design of a

randomized controlled trial to test an intervention to decrease disruptive behaviors

and increase coping and problem solving skills for youth and young adults with

FASDs ages 16-25.

10–10:10 a.m.

Break 10:10–11:15 a.m.

The Impact of Prenatal Alcohol Exposure on the Developing Brain: Implications for Understanding and Treating FASD

Featured presenter: Dr. Christopher Boys, Ph.D., licensed psychologist, pediatric neuropsychologist, co-director, Fetal Alcohol Spectrum Disorders Program, Department of Pediatrics, University of Minnesota Medical School.

Presentation will address the overall neurocognitive profile associated with fetal alcohol spectrum disorders (FASD) and distinguish the disability from other common mental health diagnoses. Presentation will also address behaviors related to fetal alcohol spectrum disorders with an emphasis on executive functions and impulse control concerns.

Meet Dr. Christopher Boys

Dr. Boys is an assistant professor in the Department of Pediatrics. He is a pediatric neuropsychologist who completed his Ph.D. in educational psychology at the University of Minnesota. He also completed his clinical internship and post-doctoral fellowship in pediatric neuropsychology at the University of Minnesota Medical School.

He is currently the director of the Pediatric Psychology Program at the University of Minnesota, as well as the co-director of the University of Minnesota Fetal

Alcohol Spectrum Disorders Program. Dr. Boys has been involved with FASD since 2001. He completes diagnostic assessments and parent training to provide interventions for children affected by prenatal alcohol exposure.

His current clinical interests include fetal alcohol spectrum disorder, psychological

aspects of and adjustment to chronic medical illness (e.g.cystic fibrosis, diabetes,

PKU), developing adherence and self-care in children/adolescents with chronic

illness and consultation within health care settings. His research interests include

establishing a neurocognitive profile for FASD, neurodevelopmental outcome of

high risk and premature neonates, investigating and the neuropsychological

profile of early and continuously treated phenylketonuria (PKU).

Join national experts in the field of fetal alcohol spectrum disorders (FASDs) as they present the latest research and practices regarding prevention, diagnosis and strategies for living with the neurodevelopmental conditions associated with the use of alcohol during pregnancy.

This summit will highlight the impact that alcohol use during pregnancy has on the individual, families and communities.While the incidence of the more well-known fetal alcohol syndrome is approximately 1 in 1,000 births, there is a wide range of other neurodevelopmental health effects – FASDs – that can be caused by prenatal exposure to alcohol. The incidence of those effects is estimated to be as high as 1 in 100 births, making FASDs more common than autism or Down syndrome. Experts and community members will address this urgent problem.

Date: Time: Location: Room: Fee:

Friday, Sept. 26, 2014 8 a.m. to 3:45 p.m.

Black Hawk College, 6600 34th Avenue, Moline, Illinois 61265 Building 1, Room 306 (theatre) $25, $10 for students (must show student I.D.)

Meet Stephanie Trusty BSN, RNC, nurse clinician, maternal health consultant, Bureau of Family

Health, Iowa Department of Public Health, Des Moines, Iowa.

Major responsibilities: Management of Women’s and Perinatal Health Programs

Professional interest(s): Women’s and maternal health, family planning tobacco

cessation for women of reproductive age, patient quality safety, fetal alcohol

syndrome prevention, shaken baby syndrome prevention, SIDS prevention, public health 3:30–3:45 p.m.

Summary, Evaluations and Closing, Pam Davies and Val Koster

Professional Continuing Education, (7) CE credits for the State of Illinois will be awarded through Black Hawk College Professional and Continuing Education

and Nursing Department for nurses, nursing home administrators, social

workers, and physical therapists.

Professional Continuing Education, (7) CE credits will be awarded for

psychologists, therapists, counselors, occupational therapists, speech

pathologists and intervention specialists.

Contact: Ajeet Charate, MBBS, MA, LCPC, CADC Director, Neurofeedback,

Counseling and FASD Institute of Illinois. A Division of Trinity Services, Inc.

24 W. 500 Maple Ave., Suite 214, Naperville, IL 60540. Phone: 630-548-4501.

Registration deadline: Friday, Sept. 19 • For more information, call 309-796-8223.

Teachers may earn (7) CPDUs. To obtain CPDUs please contact Julie at the

Rock Island County Regional Office of Education at 309-736-1111 or

Julie.cox@RIROE.com to obtain approval. CPDU processing fee is $25.

AGENDA

Summit objectives

8–8:30 a.m.

Registration, Breakfast and Networking

Co-chairs: Valerie Koster and Pam Davies: Special thanks to the Iowa

Department of Public Health and Stephanie Trusty for their generous funding.

8:30–8:40 a.m.

Emily Travis, Welcome remarks and introduction of featured speakers 8:40–8:50 a.m.

8:50–9 a.m.

9–9:10 a.m.

Ajeet Charate, FASD Initiatives in Illinois Stephanie Trusty, FASD Initiatives in Iowa Dr. Christopher Boys, FASD Initiatives in Minnesota

9:10–10 a.m.

Brave New World: After 40 Years, What Do We Know About FASDs?

Keynote presenter: Dr. Leigh Tenkku, MPH, PhD, principal investigator of

the CDC’s Midwest Regional Fetal Alcohol Syndrome Training Center (MRFASTC)

Presentation will discuss what we have learned about fetal alcohol spectrum disorders since its identification by Ken Jones and colleagues in 1973 and what we need to know about FASDs that will drive identification, treatment and prevention in the future.

• Discuss current knowledge and emerging research regarding FASDs. • Describe the impact of prenatal alcohol exposure on the developing fetus.

• Describe how prenatal alcohol exposure affects the daily life of individuals across the life span.

• Describe current supports and strategies for care of individuals with FASDs.

Special thanks to the following sponsors for funding this summit and making it happen:

• Iowa Department of Public Health, Stephanie Trusty

• Black Hawk College QC Foundation

• Black Hawk College Professional and Continuing Education

• Intouch Adult Day and Home Care Services, LSSI, Moline, Illinois

• RICCA (The Rock Island County Council on Addiction)

Organizations participating include: NOFAS Illinois (National Organization on Fetal Alcohol Syndrome), MRFASTC (Midwest Regional Fetal Alcohol Syndrome Training Center), Fetal Alcohol Spectrum Disorders Program, Department of Pediatrics, University of Minnesota Medical School, Iowa Department of Public Health.

IDPH

Iowa Department of Public Health

For program information, contact: Pam Davies at Daviesp@bhc.edu or Valerie Koster at Kosterv@bhc.edu.

Registration contact: Black Hawk College Professional and Continuing Education, 309-796-8223.

Visit our website: www.bhc.edu/pace.

BLACK HAWK COLLEGE 6600 34TH AVENUE MOLINE, IL 61265-5899