Visit our website: www.uhb.nhs.uk
For patients, staff, visitors and volunteers
Page 3 Success of apprenticeships
MARCH 2017
Page 5 Patient supports genomics project
Page 7 Recognition for research teams Determined Kelly Jackson is not letting life changing injuries sustained in a car accident hold her back. Kelly will be lining up with hundreds of others to take part in Morrisons Great Birmingham 10k to support QEHB Charity. The race is the lastest triumph for Kelly, a Patient Advocate for QEHB Charity. Read her story on page 11
Teenager’s precious gift of life to sister A transplant patient who received a kidney from her 18-year-old brother has inspired hundreds of others to sign up to the donor register. Teenager Fareed Walayat stepped forward when his sister Zarqa (pictured) suffered a crippling kidney disease which put her life at risk and meant she required hours undergoing dialysis to support her underperforming kidneys. Eight years later the lives of the brother and sister have changed but their relationship is stronger than ever and Fareed has no regrets. “Donating one of my kidneys to my sister was the biggest decision I had to make and by far the best,” said Fareed, who has had no major health issues since the operation and is now married with a son and another child due. “To see her living her life dialysis-free makes me feel happy and proud. I hope she has many many healthy and wonderful years from this kidney.”
Their story has helped others consider donating one of their own healthy kidneys to help others on the transplant waiting list. Zarqa is one of the peer educators who run regular information sessions including some at the Trust. Since setting up the campaign, Zarqa, along with fellow team members have encouraged over 1,000 people to register as blood, bone marrow and organ donors. This commitment is vital to those individuals who are in desperate need of a transplant. UHB already has the largest solid organ transplantation programme in Europe. Since January 1 2016, 34 potential altruistic donors have come forward. From those individuals that have volunteered to donate a kidney, there have been four cases where they have gone on to donate. The number of recipients at QEHB who have received altruistic kidneys from elsewhere since January 1 2016, is six. Read Zarqa’s story and find out more about live organ donation on pages 8–9
■ Around 5,000 people in the UK are in need of a kidney transplant. ■ The average length of time people wait for a kidney transplant is over two and a half years. For some ethnic groups and people for whom it is more difficult to find a compatible transplant is even longer. ■ Across the UK, more than 250 patients died last year waiting for a kidney transplant, due to a shortage of people willing to donate after their death and during their lifetime. ■ Over 500 people have donated a kidney anonymously during their lifetime to someone waiting for a kidney transplant, alongside the many thousands who have donated to a family relative or friend. ■ In 2015/16, 1,035 living kidney donor transplants were performed in the UK. ■ Around a third of kidney transplants carried out in the UK are thanks to living donors. ■ Living donors make a significant contribution across the UK with 1,075 living donors in 2015/16, with the majority donating a kidney (96% of living donors).
New visiting times to offer more flexibility From 1 April 2017, visiting times for inpatient wards will be extended to improve patient experience and access to the hospital site. The new visiting times for all inpatient wards in both the Queen Elizabeth Hospital Birmingham and the Heritage Building (original QE), will be 11.00 – 20.00. We recognise the invaluable role that visitors play in our patients’ recovery, and it is hoped that extending visiting times will have numerous benefits for patients, visitors and staff, as well as reducing the volume of people coming on to the hospital site at set times. Mandy Green, Head of Patient Experience, said: “We hope that a more flexible approach to visiting will mean that visitors can pop in at a time that suits them and, importantly, that relatives and carers will have more opportunities to be involved with aspects of their loved one’s care if they wish to.”
Why it is good to talk about organ donation The NHS Organ Donor Register is a personal choice but, knowing that you could save up to nine lives, what will you do: Waste or Save?
NHS Organ Donor Card
Join the NHS Organ Donor Register today and tell your loved ones – don’t leave anyone in any doubt about your decision! www.organdonation.nhs.uk/ wasteorsave/#timetosign www.facebook.com/nhsorgandonor Twitter: @NHSOrganDonor Instagram: @nhsorgandonor www.youtube.com/user/ NHSOrganDonation
Puzzle page: Delivering theBrainteasers, best in care mind benders and more p15 Find your way around: Hospital maps p16
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University Hospitals Birmingham NHS Foundation Trust | MARCH 2017
Members’ health talks Daytime sessions: 10.00–10.30 – Registration 10.30–noon – Health Talk VENUE: Lecture Theatre 3, Education Centre, Level 1, Queen Elizabeth Hospital Birmingham ■ Thu 23 Mar – Kidney conditions ■ Thu 27 Apr – Chaplaincy in Hospitals ■ Thu 25 May – Ulcerative Colitis and GI health ■ Thu 22 Jun – Asthma For more information see: www.uhb.nhs.uk/health-talks.htm
Free Wi-Fi network Patients and visitors now have access to a free WiFi network through a service funded by QEHB Charity. Staff are being asked not to use this network as the bandwidth has a finite capacity – if staff use it, this will impact on the level of service which patients and visitors receive. To connect, just search for a network called QEHBCharity-guestWiFi, enter your email address and then agree to the terms and conditions.
You Said, We Did… You Said Visitors to ward 624 advised staff that they would like to have a designated quiet space available on the ward. When they were given bad news or needed time to sit quietly and reflect, visitors felt they needed somewhere to go which was away from the bed spaces and the hustle and bustle of the ward.
We Did Alison King, Ward Manager, approached QEHB Charity, the hospital’s official charity, who kindly funded some new furniture and part of a room was converted into a quiet family space. The charity bought some comfortable chairs, a coffee table and a large settee. Alison said: “Staff really value being able to offer this new area to visitors and carers as it provides a space for them to spend time together as a family. We are a really busy ward and it’s important to remember that we need to provide time and space for carers and relatives to sit quietly when they need some time out.”
Left to right: Karly Green, Staff Nurse, Alison King, Ward Manager and Carolyn Tipton, Ward Housekeeper
QEHB’s multi-faith chaplaincy team
Faith in initiative At UHB we all have a commitment to treating our patients and each other with dignity and respect. To support the Trust’s inclusive approach, a new intranet-based tool that helps bring together key information has been created by the Inclusion Team with the support of the Chaplaincy Team. The ‘Faith and Community’ compendium is a collection of information about faith and beliefs, communities, sexualities and gender identities that individuals may identify with. The compendium can be used to help staff understand the needs of their patients and families to improve the healthcare that we provide. In addition, it should also be used to help staff understand their fellow colleagues’ differences, in order to promote diversity and openness. It is important to note that this compendium is intended to provide staff with a definition or broad overview of various cultures within Birmingham. It is not intended to create or promote stereotypes. Furthermore, it is necessary to remember that if a patient identifies with one of the groups covered in the compendium, it does not necessarily mean that they follow every value
that is listed in relation to their identity. At the same time, if English is not the first language of the patient, it is advised that you use the services of an interpreter (via Interpreting Services) to make sure that all information is properly communicated to the patient. It must not be assumed that a patient fully understands, as they may be concealing their confusion. Rev Canon Richard Wharton, the Trust’s Chaplaincy Team Leader, said: “Birmingham is a wonderfully diverse city, and we do understand that this resource is unable to cover every single aspect of an individual’s identity, culture or religion, therefore it is always important to involve and ask the patient, or their relatives to clarify anything you may be unsure of when caring for them. “The compendium is a great resource that will help us all become more aware of our differences, as well as a better understanding of them and how they can help improve patient experience in a spirit of inclusivity.” Antony Cobley, Head of Inclusion, Engagement and Wellbeing, added: “UHB is a champion of diversity and it is important to respect the identities of each individual at our Trust, whether they are patients or those you work with.
UHB is a champion of diversity and it is important to respect the identities of each individual at our Trust, whether they are patients or those you work with. Antony Cobley
Head of Inclusion, Engagement and Wellbeing “Our patients may feel vulnerable or anxious whilst they are being cared for and treated by us, so being mindful to treat all of our patients in line with their identity, culture or beliefs is important to their wellbeing.” For more information or to access the Faith and Community Compendium, visit: uhbhome/faith-and-communitycompendium.htm
Share your points of view The Trust held another of its successful Viewpoint Days in Outpatients at QEHB. The event provided a great opportunity for staff to gain an insight into patients’ and visitors’ views of the department. The Viewpoint Day stand was stationed in the Outpatients main waiting area and was run by nursing staff. Over 400 feedback cards were filled in and staff were on hand to answer any queries. Sue Coen, Senior Sister in Outpatients, said: “We were keen to get real-time feedback from patients and visitors and speak to them about their experiences in the department. We have a number of ways of collecting feedback such as postal surveys and leaflets, but listening and talking to patients, carers and visitors firsthand is the best way of understanding their views.” Early analysis shows that 99 percent of the comments received were very positive. Two comments mentioned waiting times. Sue continued: “A full analysis of all the comments will be undertaken. We will be acting on the constructive suggestions we received and publicising any changes we make in the You Said, We Did section of news@QEHB magazine.”
Delivering the best in care
Left to right: Sister Caroline Howard, Senior Auxiliary Kate Miley, Senior Sister Sue Coen and Senior Auxiliary Isobel Faulkner
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MARCH 2017 | University Hospitals Birmingham NHS Foundation Trust
Innovative move to improve systems A multi-disciplinary group of clinical and managerial staff from across the Trust have created an internal Human Factors Faculty. This recognises the benefits that integration of Human Factors/Ergonomics (HF/E) brings to an organisation’s safety, productivity and morale. Faculty member Peter Isherwood, a Consultant in Critical Care Medicine & Anaesthesia, said: “This is an innovative approach for an NHS organisation and demonstrates the Trust’s commitment to delivering excellence in healthcare, service and staff development. “We hope colleagues will take the opportunity to share their ideas and experience with the faculty to build on the excellent work that is already taking place across the Trust.” The Human Factors Faculty is chaired by the Executive Chief Operating Officer and is working in partnership with the University of Birmingham and Heart of England NHS Foundation Trust. The Faculty’s overall objective is to incorporate HF/E into the fabric of University Hospitals Birmingham at an individual, team and organisational level. In high reliability industries, the application of HF/E has been instrumental in optimising system performance, resilience, culture and safety and shown benefits for staff retention and morale. The Human Factors Faculty’s initial areas of work include: ■ Developing a local Human Factors definition to support understanding.
Friend and colleague Patricia Black (Pat) suddenly and sadly passed away on Thursday 22 December 2016. She had worked as a domestic in the Trust for nearly 30 years. She started in January 1987 on the evening shift and then changed shift a few times working on many areas. These included East 3 liver unit, Relatives Wing in Nuffield House, and lastly she worked at the PET Centre in the Cancer Centre. Since she started she had always worked with Tracey Bradbury and they became best friends. She had many friends in the Trust and we were all very shocked and saddened by Pat’s sudden passing. She will be truly missed by all that knew her. Our thoughts are with her family at this sad time.
PICS Update From left to right: Deborah Mortiboy, Alison Doyle, Peter Isherwood, Tracey Clatworthy, Umesh Salanke, Judith Savage, Fran Ives, Alison Ward, Robert Stone.
■ Measurement of ‘just’ culture within the organisation. ■ Developing a local HF/E framework to support application and integration at a local and organisational level. ■ Developing a HF/E training programme to support incident investigation within the organisation. ■ Introducing a daily briefing for members of the cardiac arrest team. ■ Developing a network to share, learn and collaborate. ■ Providing Human Factors training to teams and individuals.
Members of the Faculty will work with key internal stakeholders throughout the Trust to support and develop Human Factors projects. Peter said: “We hope that by taking a collaborative approach we can help support individuals and teams who already have great ideas and develop new areas of work together to bring real benefits to patients, staff and the organisation.” If you wish to get in contact for further information, get involved or discuss an idea please email peter.isherwood@uhb. nhs.uk or contact any of the faculty who will be happy to help and discuss.
Faculty members ■ Philip Bright, Director of Medical Education, Heart of England Foundation Trust ■ Alastair Williamson, Consultant Anaesthetist, Heart of England NHS Foundation Trust ■ Tracey Clatworthy, Resuscitation Services Manager, UHB ■ Pankaj Das, Project Manager Division A, UHB ■ Alison Doyle, Lead Nurse for Falls Reduction, UHB ■ Tim Graham, Consultant Cardiac Surgeon, UHB ■ Peter Isherwood, Consultant Critical Care Medicine and Anaesthesia, UHB ■ Fran Ives, Ergonomics/Human Factors Advisor, UHB ■ Deborah Mortiboy, Consultant Microbiologist, UHB
■ Lisa Penney. Lead Clinical Educator (Theatres), UHB ■ Umesh Salanke, Consultant Emergency Medicine, UHB ■ Judith Savage, Senior Respiratory Physiologist, UHB ■ Lorraine Simmonds, Head of Service Improvement and Performance, UHB ■ Robert Stone, Professor of Interactive Multimedia Systems, University of Birmingham ■ Emma Tomans, Clinical Research Fellow, UHB ■ Alison Ward, Investigations Officer, UHB ■ Ellen Ward Lindley, Informatics Analyst, UHB ■ Cherry West, Executive Chief Operating Officer (Group Chair), UHB
Success for apprenticeships The success of apprentices across the Trust will be celebrated during National Apprenticeship Week 2017. Between March 6 and 10, the week, coordinated by the Government’s Skills Funding Agency, includes a variety of events and activities for individuals employed as apprentices across England. The Trust’s Learning and Development team will be celebrating apprentice achievements and sharing with others how well our apprentices have progressed since beginning their career. Currently, the Trust has over 60 apprentices, based in various departments across the organisation, ranging from IT, sexual health, outpatients, imaging and medical engineering. After completing the apprenticeship programme, successful candidates have gained full time
Pat Black
employment either in their department or within UHB. Some have secured jobs at bands 4 and 5 including a 2nd year trainee within the medical engineering department who was appointed to a permanent Band 5 post. The UHB apprenticeship programme has had a significant impact since its launch in 2010, with apprentices making a major contribution to the Trust’s day-to-day operation and activities. “We have apprentices in a variety of roles across different areas, and many have gone on to successfully gain employment across a range of departments and bandings,” said UHB Vocational Manager Sue Bell. “This clearly demonstrates that the programme is working and National Apprenticeship Week provides a great chance to celebrate that, and recognise the efforts of everyone involved. We
would particularly like to thank all the managers across the Trust for their support, time and commitment to the programme. “By sharing their expertise, they have grown a new generation of staff committed to cascading the vision and values of education and inspiring future growth across a range of pathways.” If you would like to know more about the apprenticeship scheme ƀ Sue.Bell@uhb.nhs.uk
A wide ranging update to PICS in late February has seen a number of changes that affect all users of the system. New functionality that is included in the update will direct doctors to medications and antibiotics that need reviewing in accordance with new national guidance, as well as new guidance in assessing patients for sepsis. These updates both have CQUINs attached and more detailed information surrounding them is available separately. Mental capacity forms are also now included in PICS, with training for this rolled into mandatory safeguarding training, whilst ‘Supportive Care’ has moved to ‘Comfort Observations’ for patients thought to be in the last days of their life, where the reduction of unnecessary physical discomfort is now the priority for that patient. Some referrals within PICS have also changed for AHPs, in addition to changes in referrals to the Trust’s Diabetes Team as well as Nutrition and Dietetics. Imaging requests from within the outpatients department have also now been opened up – with paper forms set to be refused to reduce any potential delays to patients. Requesting non-urgent blood products are also now available in PICS for the first time which removes the need to call ahead to the blood bank. The process for urgent blood components requests is unchanged. The roll-out of Ward Order Comms (WOC) also continues. WOC is a change in the way laboratory tests are ordered and handled in the hospital. The changes mean that ordering routine tests will be done via PICS. Before taking the sample, the patient will have their Identity confirmed both verbally and via the scanning of their barcoded ID wristband – thus reducing risk of taking samples incorrectly. After blood is taken, blood tubes will be barcode scanned and then sent to the lab where a pre-sorter will handle them. This eliminates the human element of the booking-in process. Results will then be uploaded into PICS from the labs telepath system. Results will then be available sooner due to the streamlining of the whole process. For any further information on Ward Order Comms, please contact Sean in the PICS Training Team: PICSTrainingTeam@uhb.nhs.uk This is an unusually large update to PICS with many changes that affect all clinical staff, therefore it is important that you do take a moment to review the full outline of the changes and release notes where possible on the Trust Intranet.
See www.uhb.nhs.uk for the latest news
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University Hospitals Birmingham NHS Foundation Trust | MARCH 2017
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MARCH 2017 | University Hospitals Birmingham NHS Foundation Trust
Patients give support for life changing project A Queen Elizabeth Hospital Birmingham (QEHB) cancer patient is urging people to sign up for the pioneering 100,000 Genomes Project. Toby Knight had surgery for colorectal cancer at QEHB in January 2014 followed by chemotherapy and is now all clear of the disease. But before his operation he gave permission for a tumour sample to be kept for research - which led to him signing up to the groundbreaking NHS England initiative, the first of its kind in the world. “I signed the release form saying that the tumour could be used for research. I didn’t have a problem with that. If it could help someone else in the future that was fine,” he explained. “I then forgot about it really. I was one of the lucky ones, the surgery went well, I didn’t have a bad experience with chemotherapy and I recovered and put cancer to the back of my mind. “But when I got the phone call about the 100,000 Genomes Project I came in and had a chat about the whole genetic aspect of the disease and was happy to take part.” The project is open to patients with certain cancers as well as those with eligible rare diseases and their families and aims to sequence 100,000 whole genomes – complete sets of peoples’ genes. In the case of cancer it is hoped that comparing the genetic make-up of patients’ tumours with their healthy blood will enable doctors to learn more about the disease, leading to a better understanding of what causes it and the development of new, more personalised treatments and drugs. Toby, aged 44, who lives in Northfield, is a strong advocate of the project, having lost his mother to lung cancer just 12 months before his own diagnosis and his father to leukaemia 15 years before that. “Mum had a cough and felt a bit run down and we thought it was a bit of a cold but it didn’t go away,” he explained. “Eventually she was sent to hospital and after various scans and tests she was diagnosed with terminal lung cancer. Three and a half weeks later she passed away. “It hit me really hard, I was struggling to deal with it and then I was diagnosed myself. In a way, that helped me cope because I had to focus on my own situation.” Toby is now determined to help to raise awareness of the project and cancer research. “I am passionate about it,” he said. “I think there needs to be more projects like this and more money for research. There’s a chance I
“The 100,000 Genomes Project depends upon getting as many people on board as possible and I would urge anyone who is in that position to take part.”
ROWING
Toby Knight cancer patient
The Boat Race which challenges Oxford against Cambridge is one of the world’s oldest sporting events. Now named The Cancer Research UK Boat Race this year’s event on Sunday, April 2 it will see the university teams take part in the 163rd boat race. While these highlytrained rowers are at their peak there are many thousands of other people who take to the water to row as individuals or in a team. Others will find rowing can be just as much of a challenge in the gym. Benefits ■ Excellent opportunity to improve cardiovascular fitness and endurance ■ Increase in aerobic exercise will help burn calories. ■ Builds upper and lower body strength ■ Tests mental agility and commitment ■ Opportunity to train as an individual or as part of a team
might get sick again. Obviously I hope I don’t, but there’s always a risk, so anything that can be done to increase knowledge and improve treatment could help. “But it’s not about me, it’s about supporting anything that will help us understand more about cancer and potentially identify new, safer and more effective therapies. “There are no quick fixes, we know that, but the more work that’s put in the quicker we will make progress. The 100,000 Genomes Project obviously depends upon getting as many people on board as possible and I would urge anyone who is in that position to take part.” Professor Dion Morton, a colorectal surgeon at QEHB, said: “The 100,000 Genomes
Project cancer programme is a collaboration with NHS patients to ensure that advances in understanding the genetic background in cancer is developed, through the NHS, into early delivery of new diagnostic tests and new targeted therapies for patients at the earliest opportunity.” Professor Morton is also Director of the University Hospitals Birmingham-led West Midlands Genomic Medicine Centre, a collaboration of 18 NHS Trusts which is delivering the 100,000 Genomes Project across the region. For more information, go to ƀ westmidsgmc.nhs.uk
Cancer treatment insight West Midlands Genomic Medicine Centre (WMGMC) is hosting a free public event at Queen Elizabeth Hospital Birmingham (QEHB) examining the impact of genetics and genomic medicine on our understanding and treatment of cancer now, and in the future. The evening, entitled ‘The Future of Cancer Treatment: Can genetic science benefit patients?’, is being organised in collaboration with the S:CORT Consortium – a Medical Research Council and Cancer Research UK-funded body which aims to use genome-based technology to personalise care for bowel cancer patients. “Genetics and genomic medicine is set to transform our understanding of cancer,” said
WHY NOT TRY?
Professor Dion Morton, Director of the WMGMC and a colorectal surgeon at QEHB. “It will lead to improved diagnosis, personalised treatment based upon the patient’s own genetic make-up and new drugs therapies. “This free event will give patients, the public and those interested in cancer care a great opportunity to hear about how this cuttingedge science is shaping treatment for patients in Birmingham, the West Midlands and beyond.” The event will run from 6–9pm on Tuesday, March 28, in the Education Centre at QEHB, where those attending will hear from leading researchers and clinicians about cancer in NHS England’s pioneering 100,000 Genomes Project
as well as the S:CORT programme and how genomics can improve bowel cancer therapies. There will also be perspectives from patients and charities on the role of genomics in cancer care, a debate and a Q&A session. The evening is being supported by Cancer Research UK and the Collaboration for Leadership in Applied Health Research and Care (CLAHRC) West Midlands. Attendance is free but spaces are limited, so please register promptly at https://the-future-of-cancer-treatment. eventbrite.co.uk, e-mail wmgmc@nhs.net or call Becky Parke on 0121 371 5397.
Rowing can be a good way to burn off fat and improve cardio-respiratory fitness. There are opportunities for rowing at all levels of ability. Some will relish an early morning start out on the river while others will appreciate the challenge of rowing on hi-tech gym equipment. To find a club and for more information see the website at britishrowing.org Did you know, UHB offers a comprehensive sport and exercise medicine service (SEMS) delivered by musculoskeletal physiotherapists and a SEMS consultant? For more information, please visit uhb.nhs.uk/sport-and-exercisemedicine.htm
Keep up with UHB online uhb.nhs.uk facebook.com/QEHBofficial twitter.com/uhbcomms
See www.uhb.nhs.uk for the latest news
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University Hospitals Birmingham NHS Foundation Trust | MARCH 2017
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APEX
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MARCH 2017 | University Hospitals Birmingham NHS Foundation Trust
RESEARCH NEWS Diabetes trial
Left to right: David Loughton, Chief Executive, The Royal Wolverhampton NHS Trust; Jo McCormack, Lead Research Nurse; Dr Tessa Lawrence, Research Associate; Fiona McGlynn, R&D Business Manager; and Professor Jeremy Kirk, Clinical Director of NIHR Clinical Research Network West Midlands
Impressive team effort pays off for researchers Research teams at University Hospitals Birmingham (UHB) have been recognised for their expertise in delivering commercial research studies. The Trust Research and Development Department were announced as the outright winners for Delivering Commercial Studies to Time & Target category at the 2016 West Midlands NIHR Clinical Research Network (CRN) Awards. The accolade goes to the trust or partner
which shows greatest contribution to delivering patient recruitment to deadline and within budget for commercial studies. This demonstrates good performance for UHB working with pharmaceuticals companies and in turn attracts investment and growth for the UK economy. UHB has the highest number of commercial studies that have met the criteria over the past two years as well as having the most studies closed whilst achieving the same targets.
Head of R&D Operations Jo Plumb said: “We are very proud to have won this award at UHB. “It is just reward for the effort which is put in by our expert R&D and clinical teams to deliver research for the benefit of our patients by giving our patients the opportunity to access new treatments and drug trials. “It is also a good message for commercial partners and shows that those partners can come to UHB confident in the knowledge that we can deliver studies on time to budget.”
Thermal imaging detects early signs of thyroid eye disease A team from University Hospitals Birmingham (UHB) have been awarded major national and European prizes for their breakthrough work in detecting the early signs of eye inflammation in patients with thyroid disease. The research team, led by ophthalmology registrar Matt Edmunds and consultant eye surgeon Alastair Denniston, working with consultant endocrinologist/clinician scientist Kristien Boelaert and the UHB Clinical Photography department, used a thermal imaging camera to measure the temperature of the tissues around the eyes in patients with a thyroid condition called Graves’ Disease. Around a quarter of those with Graves’ Disease can go on to develop eye problems with bulging, redness and swelling of the eyes, grittiness, soreness and pain, double vision and even blindness, known as Thyroid Eye Disease (TED). Unfortunately, it is impossible to predict which Graves’ patients will develop TED and the current assessment methods are sometimes inaccurate and subjective.
We would also like to thank over 300 thyroid clinic patients who participated in the study. We very much hope that this work will benefit many other thyroid patients in the future. Matt Edmunds Ophthalmology Registrar However, the UHB team found that it was possible to detect early signs of inflammation, as shown by an increase in temperature around the eyes on thermal imaging photography, in those Graves’ patients who went on to develop TED.
“This raises the possibility of making a diagnosis of TED at the earliest possible stage and therefore intervening with therapies before the unpleasant effects of TED take place,” explained Matt. Matt presented the findings at the Oxford Ophthalmological Congress, one of the biggest eye conferences in the UK, and won the Ian Fraser Cup for best clinical research. He also presented the work at the annual meeting of the European Society of Ophthalmic Plastic & Reconstructive Surgery (ESOPRS) in Athens, Greece, winning the best presentation prize. “We would like to thank our funding bodies, Fight For Sight, British Thyroid Foundation and the Thyroid Eye Disease Charitable Trust, for enabling us to complete this important work,” he went on. “We would also like to thank over 300 thyroid clinic patients who participated in the study. We very much hope that this work will benefit many other thyroid patients in the future.”
Researchers at Queen Elizabeth Hospital Birmingham are appealing for members of the local Muslim community to take part in a study on the effects different medications have on people with diabetes fasting for Ramadan. During the month of Ramadan Muslims are required to fast from sunrise to sunset which, with the holy month falling in May and June this year, could mean up to 14 and a half hours without eating or drinking. Going without food and drink for such long periods poses an increased risk for those with Type 2 diabetes, with the potential for blood sugars dropping to dangerously low levels. Although Islam exempts ‘sick’ people from the duty of fasting, many Muslims with diabetes do not consider themselves to be sick and are keen to fast. There have, however, been significant advances in glucose lowering therapies during the past ten years, with the potential for supporting safer fasting. The Can Do Ramadan study aims to compare the use of one of these new drugs, Canagliflozin, against current standard dual therapy approach using sulphonylurea-based drugs alongside metformin. The team from Birmingham, led by Professor Wasim Hanif, is working with colleagues from the University of Leicester, and want to hear from Muslims with Type 2 diabetes who intend to observe Ramadan and would be willing to be part of the study. “Can Do Ramadan is an important study in patients who are fasting for Ramadan with Diabetes,” said Professor Hanif. “It tries to answer the question as to the suitability and safety of medicines used when patients are fasting. “University Hospitals Birmingham is a recognised global leader in research on patient fasting during Ramadan. “This has only been possible with the support of our patients and the larger community. We hope to get the same support and participation of our patients and the community in this study.” Anyone with tablet-controlled Type 2 diabetes who is over the age of 25 may be eligible to take part in the study, which will involve two to three visits to QEHB before Ramadan and two more afterwards. For more information, contact Debbie Smith or Gurvinder Gill 0121 371 4707
Seminar date Multidisciplinary research in the NHS across the West Midlands region is to be celebrated during a Birmingham Health Partners event at UHB on May 19. The event, in the Education Centre at QEHB, will feature plenary sessions and workshops for aspiring researchers on developing their clinical academic careers and for NHS managers interested in embedding these careers within the health service. The multidisciplinary research undertaken in the region will be showcased with a series of presentations as well as poster displays, with abstract submissions currently being invited for both. The deadline for submissions is 5pm on April 1. For further information visit: birminghamhealthpartners.co.uk/whats-on
If you have a research story email Lee.Gibson@uhb.nhs.uk See www.uhb.nhs.uk or call 0121 371 for the 8106latest news
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University Hospitals Birmingham NHS Foundation Trust | MARCH 2017
Transplant patient’s 10 March 2016 ā Black, Asian and minority ethnic (BAME) communities are more at risk, but less likely to donate ā Kidney failure is up to five times more common in people from BAME communities. ā Asian people with diabetes are 10 times more likely to suffer from kidney failure compared to Caucasians. ā People from BAME communities are more likely to need a kidney transplant. ā Over a third of people in the UK waiting for a kidney transplant are from BAME communities. But people from these communities make up less than 4% of the NHS Organ Donor Register (ODR). ā On average Asian people wait 321 days longer and Black people wait 327 days longer for a transplant. The shortage of donors among this group is critical.
Raising awareness
Spreading the message at last year’s event
World Kidney Day will be marked again this month with the theme ‘Kidney Disease and Obesity’ with the QE Kidney Patients’ Association (KPA), and the Trust’s renal dialysis, transplant, research and dietitian teams marking their fifth year raising important awareness of kidney conditions – and what we can do to prevent them. Obesity is defined as abnormal or excessive fat in the body that may impair your health. In 2014, over 600 million adults were obese across the world and is a potent risk factor for the development of kidney disease. It increases the risk of developing major risk factors of Chronic Kidney Disease (CKD), like diabetes and hypertension, and it has a direct impact on the development of CKD and end stage renal disease (ESRD): in individuals affected by obesity, the kidneys have to work harder, filtering more blood than normal to meet the demands of the increased body weight. The increase in function can damage the kidney and raise the risk of developing CKD in the long-term. The good news is that obesity, as well as CKD, is largely preventable. Education and awareness of the risks of obesity and a healthy lifestyle, including proper nutrition and exercise, can dramatically help in preventing obesity and kidney disease. Come along to the atrium, QEHB on Thursday 9 March all day to meet the teams and find out how you can protect your kidneys and the tireless work done by the KPA to support kidney patients across the Trust. For further details see the Kidney Research UK website: ¬ kidneyresearchuk.org
To look at Zarqa Walayat it is difficult to believe that this 35-year-old woman with a zest for life has undergone a kidney transplant. Just seven years ago, her kidneys failed and she faced an uncertain future. After life-saving treatment at the Queen Elizabeth Hospital she underwent dialysis treatment to support her under-performing kidneys but her condition continued to deteriorate. Her skin turned yellow, her face swelled, she lost her hair and for three traumatic weeks she went blind. “I knew I was in a very bad way and felt so, so terrible,” said Zarqa, who had only been married just over a year when the illness first took hold. A new kidney was an option and while her husband Juma Azia and other members of her family were willing it was Zarqa’s 18-year-old brother Fareed who insisted on being first in the queue. “Fareed had been with me all the time and had seen how the illness had affected me,” said Zarqa, who lives in Worcester. “From the start he wanted to donate a kidney but I thought he was too young and didn’t want him to take such a big step. When we got the news that there was match it was overwhelming.” Extensive tests and counselling followed before Consultant nephrologist Dr Adnan Sharif and the experienced transplant team were happy that both the recipient and the donor understood the risks. The transplant finally went ahead on November 26th, 2010. Zarqa, who has since had to undergo follow up operations, said: “It hasn’t been straight forward and I still need regular checks but without the transplant I know I wouldn’t been here today.” Her early flu-like symptoms had been blamed on a virus and it was only after she insisted on a blood test that it was revealed her kidneys were performing at only eight per cent. Once at the Queen Elizabeth she was diagnosed with Goodpasture’s Syndrome, which is likely to have been affecting her health for many months or even years. This means the body’s immune systems makes antibodies that attack rather than protect the linings of the lungs and kidneys.
Peer educators Hundreds of people who might be hesitant to sign up to the donor register have taken the decision thanks to peer educators like Zarqa Walayat. These individuals have first-hand experience of what a difference an organ transplant can make to not only strangers but often their families and friends. Each week Zarqa and her fellow educators spend time talking face-to-face with people including regular sessions in the atrium at the Queen Elizabeth Hospital Birmingham. The volunteers also spread the message at festivals and mosques across the region. The programme to raise awareness, coordinated by charity Kidney Research UK, has had support from the Department of Health. The peer educators talk to individuals to raise awareness about the need for people
from all communities to sign up to the donor register. Zarqa said: “When we are talking to people, especially from Asian or black communities there is a reluctance to sign up to the organ donor register. “They can be surprised to discover that they are talking to someone who has had a transplant because I do look so healthy. Many are prepared to listen and do change their minds or want more information. “I do believe that if it were one of their family who needed a transplant they would feel differently but it is different agreeing to be a donor. I tell them that if organ donation was not allowed in the Islamic faith then I would not be here today.” The work of the peer educators has been recognised across the region including winning two awards at the Sandwell and West Birmingham CCG Awards (pictured right).
I have never felt better than I do now and many people are surprised when they know I have had a transplant. I can never thank Fareed enough for what he has done. Zarqa Walayat, Kidney transplant recipient Zarqa, who is now a full-time carer for her sister, said: “I have never felt better than I do now and many people are surprised when they know I have had a transplant. I can never thank Fareed enough for what he has done. “Before I was taken ill there was always a bond between us and, because of our 10-year
age difference, I did like to mother him but now our bond is even stronger. We share our all our problems and we are there for each other. I can never thank him enough.” Fareed, who has no major health issues since the operation, is now married with a son and another child due in late February.
transplant centre who can advise you on the process. There is a full list of transplant centres at www.organdonation.nhs.uk/livingdonation.
healthy enough to donate. A kidney will never be removed from someone unless the doctors are satisfied that the risks to them, in the short and long-term, are acceptably low. Some people who wish to donate find that they are not able to do so because of the results of the assessment process. Members of the team involved in your assessment may include doctors, nurse coordinators, counsellors, psychologists and social workers. They will guide you through the process every step of the way.
Living donations Where can I find out more information or advice about living kidney donation? For more information on living kidney donation visit the website: organdonation.nhs.uk/ livingdonation. Where can I find out more information or advice about living liver donation? People can donate part of their liver to help someone in need of a liver transplant. For more information on living liver donation, go to: organdonation.nhs.uk//faq/living-organdonation/ How do I express an interest in becoming a living kidney donor? If you know the person you are considering donating to, please contact the hospital/ transplant centre where they are cared for. They will give you some further information and begin the process for you if you wish to be assessed as a living donor. If you do not have a recipient in mind and wish to donate anonymously, please contact the living donor coordinator in your local
Delivering the best in care
Is there an age limit for donors? In England, Wales and Northern Ireland, there is no lower age limit specified in law for a person to be considered as a living kidney donor. In Scotland, only people over 16 years of age can be legally considered. However, almost all donors are over 18 years old and children are only considered in very exceptional circumstances, with court approval. Children are not considered as non-directed donors. There is no maximum age limit for donation. Donors are assessed on their own health and the suitability of the kidney for the intended recipient. In the UK there have been successful living kidney donations from people more than 80 years of age. How will I know if I am suitable to donate? You will undergo a number of medical and surgical tests to check that you are fit and
What are the risks? Potential kidney donors undergo a number of medical and surgical tests to check that they are fit and healthy enough to donate. A kidney will never be removed from someone unless the doctors are satisfied that the risks to them, in the short and long-term, are acceptably low. All potential living donors are encouraged to consider the risks when they are deciding if living donation is right for them and these will be explained as they go through the process.
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MARCH 2017 | University Hospitals Birmingham NHS Foundation Trust
story inspires new donors Legal and cultural considerations How is living donation governed in the UK? In England, Wales and Northern Ireland the Human Tissue Act 2004, and in Scotland the Human Tissue (Scotland) Act 2006, provide the legal framework for organ and tissue donation in the UK. The Human Tissue Authority (HTA) regulates the donation by living people of solid organs and part organs. The HTA give approval before any living donation can proceed. All donors will be assessed by an Independent Assessor, who is trained and accredited by the HTA, as a routine part of the evaluation process to ensure that all the legal requirements have been met. The law requires that the donor must fully understand the nature and risks of the procedure and that there is no coercion, pressure or payment involved in the donation of the organ or part organ, which is illegal in the UK.
Can I promote someone’s search for a donor on social media? NHS Blood and Transplant does not actively promote organ donation appeals for individuals. We strongly advise the person who is seeking a transplant in this way to discuss their situation with theory own medical or transplant teams for further advice and support. What are the cultural and religious views on living donation? The UK is increasingly multicultural. If you have any concerns about living donation contact your Community Association Group or community leaders. Most religions support living donation as they view it as a gift to a loved one. However, if you have any doubt, you should contact your religious leader or place of worship for support and advice.
Surgery and recovery How is the kidney removed? You will be given a general anaesthetic which means that you will be asleep during the operation. Usually the kidney is removed using keyhole surgery. You will have 2–4 keyhole wounds (around 1cm) and, depending on the technique used, a slightly longer scar where the kidney was removed. Different surgeons use slightly different techniques, so please check with your own team where your scars are likely to be positioned if this is of concern to you.
How long will I be in hospital? This varies depending on your individual recovery and type of surgery but the average stay is three to five days.
How long will the operation take? The operation usually takes approximately two to three hours. When you wake up you may have a tube draining your urine (a urinary catheter) and a drip (a tube inserted into your arm through which the medical team can keep you well hydrated and give you pain killers as needed). You may also have a tube draining fluid from the main surgery area. All of these will be removed over the following days as you recover.
Will I need to take medication after donating? Apart from the painkillers mentioned above, you may also need to take antibiotics for a short period of time. However, you will not need any long-term medication as a result of kidney donation.
How painful will it be? When you wake up, you will already have been given strong painkillers to help reduce any discomfort after the operation and you will continue to receive pain relief for as long as you need it in hospital. You will also be given painkillers to take with you when you go home.
What about follow-up? We will ask you back to the hospital between two and six weeks after donation so we can
check that you are recovering and healing well. We also encourage you to attend a follow-up appointment every year after your donation so we can make sure your remaining kidney is still functioning well and that you are still fit and healthy after your donation. This also gives you an opportunity to raise any concerns you may have. If you do not live in the UK, you will be advised how to arrange followup in your own country before you return home. What if I decide against being a donor? Volunteering to be an organ donor is entirely your choice and the journey between volunteering to donate and actually donating can be a difficult and emotional one. Sometimes people decide that donating is not for them part-way through the assessment process. You are free to change your mind at any point along the way. The transplant team wants you to be comfortable with the choice you make and will be supportive and respectful of any decision you make along the journey – even if this means you not donating.
Will the transplant be successful? Living kidney transplantation is usually very successful with 97% of donated kidneys working well a year after the operation. This compares with a success rate of 94% for kidneys from deceased donors. However, there is no guarantee that the transplant will be successful and, sadly, a tiny number of people have very serious complications and the kidney has to be removed. It is important, before going ahead, to consider how you might feel if the transplant is not successful. Will you be told the outcome of the donation and subsequent transplant? For non-directed altruistic donors and donors in the paired/ pooled donation scheme, it is likely that you will never know the outcome of your donated kidney or the identity of the recipient unless the recipient chooses to make contact with you.
Practical considerations Will I be covered by my health insurance? You should check with your insurance company prior to donating. The transplant team is always happy to offer help and advice if your insurance company has any specific questions related to the donation and life-long risk for you. What if I live in a different part of the UK from the person I am donating to? Your transplant team can arrange for your donor assessment to take place at a hospital near to you if that is easier for you. Usually the donation will take place in the hospital where the person you are donating to is cared for. However, it may be possible to donate in a transplant centre closer to home, depending upon individual circumstances. Your kidney can always be transported safely to the recipient’s transplant centre.
What if I live outside of the UK? You can still donate to a friend or family member but there are some restrictions on donating to people with whom you have not had a close or previous relationship if you are not resident in the UK. Some preliminary tests can be arranged in your own country to see if you could be a suitable donor. You should contact the living donor coordinator in your recipient’s transplant centre for further information and advice. If your first language is not English and you are considered to be a suitable donor, translation support is available for you throughout the detailed assessment process. How long does the donor assessment process take? The assessment process usually takes at least
three months. However, it may take more or less time depending upon where you live, the hospital you are being assessed by and the types of tests you may require. Wherever possible, the assessment process is tailored around your other commitments. How much time will I need to take off work? Most transplant centres will try to arrange the tests and investigations before the operation around your work to minimise disruption to your job. It is sometimes possible to arrange for some of the tests to be done locally if you live a long way from the transplant centre. The recovery period after the operation usually lasts between four to twelve weeks depending on the surgery, your individual recovery and the type of work you do (e.g. those with a desk-based job may be ready to return to work sooner than those with
a very physical job). You should discuss this with your coordinator to get a better estimate of how much time you may need to take off work. How will I be able to afford time off work? There is a UK scheme which enables donors to reclaim necessary expenses such as loss of earnings and travel. However, you should first discuss this with your employer and find out what is available under your (their) terms of employment around Statutory Sick Pay. Please talk to your Living Donor Coordinator about expenses at an early stage of the process if you may need to apply to the scheme as there is some information that you will need to read and an application form to complete. A letter from your employer and evidence of your expenses will also be necessary.
See www.uhb.nhs.uk for the latest news
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University Hospitals Birmingham NHS Foundation Trust | MARCH 2017
BHBN’s LATEST RADIO SCHEDULE BHBN Hospital Radio broadcasts patient requests, music, news, live sport and a range of speciality programmes to NHS hospitals across Birmingham. The station, founded in 1952, is based in new studios in the Heritage Building (original Queen Elizabeth Hospital), they are on air 24 hours a day. They can also be heard via their website www.bhbn.net and the TuneInRadio app. MONDAY 4pm 5pm 7pm 8pm
Music from Stage and Screen – Miranda Burns Good Vibrations – Donna Joseph Hospital Request – Miranda Burns The Evening Show – Dale Hobson TUESDAY
4pm 6pm 7pm 8pm
Playing it Cool – Pete Bayliss Easy Listening – Kelly Howell Queen Elizabeth Hospital Requests – Nick Whitehouse The Evening Show – Paul Millington WEDNESDAY
4pm 6pm 7pm 8pm
The Rock Years Words & Music – Brian Henderson Good Hope Hospital Requests – James Chew The Evening Show – David Elliot THURSDAY
5pm 7pm 8pm
Thursday Tea Time Show– Bill & Jo Solihull Hospital Requests – Geoff O’Brien The Evening Show – Chris Friday FRIDAY
4pm 6pm 8pm
Let’s Get Quizzical – Emma Boydell Pick & Mix – Brendan Delaney The Evening Show – Rhi Sprague CBSO Concerts when broadcast are on Fridays from 7pm
SATURDAY 7am 9am 11am 1pm
2pm 5pm 8pm 9pm
Weekend Breakfast – Dave Horton BHBN Gold – Colin Monnaf The Frock Show – Sarah Morris Queen Elizabeth Hospital Requests – Anita Shah, Michelle Woodhouse (Military Ward) (Alternate Weeks) Birmingham Sport – Live Commentaries from Villa Park, St Andrews or The Hawthornes Saturday Disco – Marky B Saturday Alternative – Olya Jeneson The Reggae Selection SUNDAY
Laid Back Sunday – Bill Waldron Kitch & Kool – Brendan Delaney Mystery DJ / Music Selection The Sunday Bash – Graham Allen Hospital Requests and Duets From 4pm The Decades – Shaz Hill 6pm Asian Mix – Raveeta Banger 8pm The Evening Show – Doug Jackson 10pm BHBN Country – Dave Horton 11pm BHBN Classical Collection 8am 10am Noon 1pm
From left to right: Douglas Jefferies, Birmingham & District Tinnitus Support Group, Patrick Richmond-Ward, Hearing Therapist at UHB, Martin Barnes, Audiologist at UHB
Together for tinnitus To mark Tinnitus Awareness Week 2017, the Trust’s Audiologists and Hearing Therapists joined forces with Birmingham & District Tinnitus Group volunteers to organise an information stand in the QEHB atrium. This year’s theme was ‘Together for Tinnitus’ and the aim was to generate discussion about tinnitus and raise awareness of the support provided by the British Tinnitus Association, who coordinate Tinnitus Awareness Week each year. Over 50 people visited the stand during the day and the team handed out information packs from the British Tinnitus Association (BTA). UHB’s Audiologists and Hearing Therapists, who are experts in the condition, offered advice and volunteers from the Birmingham & District Tinnitus Group discussed their experience of tinnitus, the help they have received and what worked for them. Martin Barnes, Audiologist at the Queen Elizabeth Hospital Audiology Centre, said: “We’ve had a great response to the stand and talked to patients, visitors and staff. The time spent talking about tinnitus and signposting people to sources of support was very worthwhile. “Hearing loss is a hidden problem and tinnitus is even more hidden. Actually, statistics show 1 in 10 people in the UK have the condition,
with 1 in 50 suffering really badly. We would encourage anyone who thinks they have tinnitus to seek advice and support. Don’t suffer – ask for help.” For more information about Tinnitus Awareness Week and the condition in
general, please visit the BTA website www.tinnitus.org.uk/taw2017 For information about the Birmingham & District Tinnitus Group, please see the Support Group information on page 13 or their website: www.tinnitusbham.org.uk
Tune in to singer’s message
ALL OTHER TIMES – THE BHBN MUSIC SELECTION – including the light lunch weekdays at 1pm and three hours of late night love songs from 11pm. Available on channel 9 on the premier bedside units and in all parts of the hospital by logging onto the qe charity-guest wifi and following the listen live links on bhbn.net bhbn.net
Left to right: Tony Howarth, Service User. Tracy Wright, Hearing Therapist at UHB, John Bate, Birmingham & District Tinnitus Group, Peter Monksfield, ENT surgeon at UHB.
to donate:
Award-winning singer Lucy Shaw
Delivering the best in care
BHBN Hospital Radio is supporting an awardwinning singer song writer in her campaign against knife and gun crime. Nineteen-year-old Lucy Shaw, who launched her second single ‘Gunshots’ nationally across the hospital radio network, said: “Growing up in Birmingham I am aware of the increase in gun and knife crime and the impact it has on families and all members of society. “I see the inhumane and absurd acts of violence that are causing such widespread suffering around the world through the use of weapons and I want it to end. People need to understand, particularly when they are young that actions have consequences and to quote Ghandi, ‘An eye for an eye makes the whole world blind’. I want to try and make a difference through my music.” The Secretary of State and MP for Bromsgrove Rt Hon Sajid Javid MP has given his support to
Lucy’s campaign. He said: “It is inspiring to see the determination of Lucy to sing about issues she is passionate about.” During the launch weekend Lucy requested people to listen to her track and to stop for a few minutes, have a conversation with their peers, children, nephews, nieces and grandchildren about the dangers of carrying weapons and why they may feel the need to possess them. She said: “No parent wants to believe their child would do this, no friend wants to lose a friend but in reality, some do. So, it’s about encouraging a conversation and supporting one another to say this must stop.” More information about Lucy can be found on all social media platforms and Soundcloud by searching lucyshawmusic. Gunshots is available to download on Spotify and iTunes.
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MARCH 2017 | University Hospitals Birmingham NHS Foundation Trust
Race is on for our great fundraisers We’re delighted to see so many people getting stuck into our bumper selection of running events this year. From the Morrisons Great Birmingham 10K to the London Marathon, our fundraisers have it covered, and you can join them! Kelly Jackson (pictured), a former patient who lost her leg after sleepwalking to her car and crashing into a tree, is running the 10K to thank the ‘fantastic’ staff at the hospital that saved her. Kelly, 28, spent three weeks in a coma at QEHB following the crash near her home in Hall Green. Her right leg couldn’t be saved and was amputated above the knee. She said: “I don’t know why I got into my car, but I was found in my pyjamas. “I have no memory of being in the car or the crash itself, I suspect I will never really know what happened but one thing I do know is that I am lucky to be alive.” Kelly spent four months recovering in hospital after the crash, which saw her thrown out of her Mini and trapped beneath the wreckage. She suffered a brain injury and severe burns, has undergone a string of operations to reconstruct parts of her face and still needs more cosmetic surgery. Having already completed a daring abseil in aid of patients at QEHB in 2015, as well as becoming a Patient Advocate for QEHB Charity, Kelly is set to embark on a new challenge as she joins thousands of others at the annual Morrisons Great Birmingham 10K, which takes place in the city centre on Sunday 30 April. She said: “I’ve been training using my new blade, which felt weird at first, but now I’m getting the hang of it. I’m not sure how much
Good luck London Marathon runners Joining Kelly are our brilliant London Marathon runners, who will pound the pavements of the country’s capital on Sunday 23 April, to raise money for QEHB Charity. Solihull GP Arif Zafar may describe himself as the ‘opposite of a runner’ but he’s taken on the challenge of running the 2017 Virgin Money London Marathon in memory of his mother Shahnaz, who died after a road accident in 2013. Now Arif, 42, is raising money for patients at the Queen Elizabeth Hospital Birmingham’s Critical Care Unit. The GP at the Charles Road Surgery in Small Heath aims to raise £2,000 for QEHB Charity. To sponsor Arif please visit justgiving. com/fundraising/Arif-Zafar2 Joining Arif are Chris Thomas, a skin cancer patient at QEHB who is raising money for the skin cancer appeal, Ross Burton, who is raising money for Critical Care in memory of his father, and Adam Johnson, landlord at the Plough, Harborne, who is raising money for young people with cancer. Although places for the Virgin London Marathon 2017 have sold out, you can register your interest to take part next year, by contacting: ƀ laura.power@uhb.nhs.uk
I have no memory of being in the car or the crash itself, I suspect I will never really know what happened but one thing I do know is that I am lucky to be alive. Kelly Jackson, Patient Advocate for QEHB Charity
of the race I will be able to run, but I’ll definitely do my very best to complete the course on the day!” The race is open to people of all abilities and includes several musical waves featuring hits from the 1970s, 80s, 90s and 000s. Running as part of QEHB Charity’s team gives you access to training hints and tips, a free professional running vest and plenty of cheering on the day, as well as support leading up to the event. If you’d like to join Kelly and sign up to run the 6.2 mile course in aid of patients at QEHB, please visit www.runforbrum.org
If you’d like to sponsor Kelly, please go to www.justgiving.com/fundraising/Kellyjackson28 If you’ve been bitten by the running bug and would like to take on more of a challenge, why not consider joining the Morrisons Great Birmingham Half Marathon or the Birmingham International Marathon? Both events are taking place in the city centre in October, and you can sign up to race now! Just go to runforbrum.org to register, or contact Laura Power on 0121 371 4852 for more information.
Inspired to run Kind-hearted occupational therapist at QEHB, Isobel Deeley, has conquered America’s New York Marathon to raise money for the hospital that saved the life of her patient – and now friend – Tunisia terror attack victim, Allison Heathcote. Isobel Deeley (pictured), a 27-year-old from Sutton Coldfield has worked as an occupational therapist at QEHB for three years. During that time, she has met thousands of inspiring patients who have made great progress in the face of adversity, and this was never more true than in the case of Allison, one of many victims of the June 2015 Tunisia mass killing. Isobel said: “I decided to do something I’ve never done before and compete in the New York Marathon to raise money for QEHB Charity, not only because I work at the hospital it supports, but because of a fantastic, strong-willed woman I met through work.” Allison, who was shot five times in the attack, was celebrating her 30th wedding anniversary with her husband, who died in the atrocity. Allison was airlifted to QEHB where she endured hours of surgery. She received gun shots to her shoulder, her torso and her right arm, which caused her bones to shatter into 18 pieces. Isobel said: “Allison underwent hours of intense therapy, and I was one of the team of professionals who treated her.”
Dates for your diary Danceathon Snobs Nightclub, Birmingham APR Get your groove on and help raise vital funds, by joining QEHB Charity’s first ever Danceathon. The event will take place at Snobs nightclub at the corner of Hurst Street.
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For further details call 0121 371 4852 or email cathryn.worth@uhb.nhs.uk VIP Day QEHB Charity is inviting schools and community APR groups to dress up as their favourite VIP and raise money for children with cancer who are treated at QEHB.
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For a free fundraising pack or to find out more email sophie.carroll@uhb.nhs.uk or call 0121 371 4852. Curry Night Deedar Indian Restaurant Barnt Green APR Deedar Indian Restaurant, will host a fantastic evening of great food and entertainment, and help raise money for The Giles’ Trust, which supports brain tumour research at QEHB.
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Book your place at qehb.org/events or contact cathryn.worth@uhb.nhs.uk for more information. Born Survivor Capesthorne Hall, Manchester MAY Are you a Born Survivor? Join QEHB Charity at Manchester’s Capesthorne Hall and take on the ultimate military obstacle course. Registration for QEHB Charity supporters is reduced to £50, inc. return travel to Manchester.
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For more info visit qehb.org/events or call Justine Davy on 0121 371 4852. Aegon Classic Tennis Tournament Priory Tennis Club JUN Join QEHB Charity for a fantastic day of tennis and see some of the world’s most famous tennis players take to the court. QEHB Charity is offering discounted upper tier seating for just £5 per ticket, as well as a luxury hospitality option for £99 including a champagne reception, three course lunch, afternoon tea and free bar throughout the day.
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It wasn’t long before the pair struck up a strong friendship. Isobel said: “Allison is an amazing woman who went through unbelievable trauma. She is a true inspiration, moving on in her life in positive way, despite facing such unthinkable tragedy.” So, inspired by Allison’s journey, Isobel decided to compete in the marathon and has raised hundreds of pounds in support of other patients, as they undergo occupational therapy at QEHB and begin to rebuild their lives. Allison said: “The whole hospital was amazing and I can’t thank everyone who was involved in saving my life enough. Isobel was part of the fantastic therapy team who supported me throughout my rehabilitation and it is so wonderful that she wants to give back to the hospital and the charity that helped me to rebuild my life.”
To join us visit qehb.org/events or contact justine.davy@uhb.nhs.uk for more information.
To find out how you can support the work of QEHB Charity get in touch with the team via the website or email charities@uhb.nhs.uk
To make a donation to any of the appeals mentioned please visit qehb.org or contact the QEHB Charity team on 0121 371 4852
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University Hospitals Birmingham NHS Foundation Trust | MARCH 2017
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MARCH 2017 | University Hospitals Birmingham NHS Foundation Trust
Hard working endoscopy team meet high standards Teamwork and a commitment to high standards has enabled the Trust’s endoscopy unit to maintain its JAG accreditation which ensures the quality and safety of patient care. The recognition from JAG, the Joint Advisory Group on GI Endoscopy, is acknowledged as a special mark of excellence and is only given to units who meet its very strict criteria. Each year the unit sees more than 11,000 patients who require a diagnostic and therapeutic endoscopic examination. These procedures cover a wide range of speciality areas including; Gastroenterology, Respiratory, Urology, Upper GI, Colorectal and Liver patients. Jack Bramhall, Group Support Manager – GI, Endoscopy, said: “Year on year UHB have seen a significant increase in demand for endoscopy services, responding to these challenges and continuing to deliver our high quality patientcentred service. JAG accreditation recognises this and UHB is one of only a small number of trusts across the country to maintain this designation.
We are particularly proud this year to have been awarded it again. “Over the last 12 months the department has adapted to meet the needs of our patients, including working evenings and weekends, allowing us to offer a greater variety of appointment times for our patients. We have also been reviewing elements of our service ensuring we are working in the most efficient ways possible. “Key to the success of the unit is the close working relationship we have between the Nursing, Medical and Management teams. As the operational manager, I am very proud that our department has maintained JAG accreditation through the last few years. This really is a testament to the hardwork and commitment from the nurses and endoscopists, as well as the administration staff behind the scenes. The whole team collectively have worked tirelessly to ensure our patients receive the best in care.�
Left to right: Staff nurses Veronica Drinkwater, Rosemary Matonhodze, Marina Chacko, Sister Shriya Begum, staff nurse Mary Duffy, unit manager Fiona Thomas, group support manager Jack Bramhall, booking co-ordinators Sandra Davis and Angela Gardner, Endoscopy Audit Co-ordinator Kellie Ward, charge nurse Dennis Mojica and staff nurse Michelle Panton
Groups offer help: Patients, families and staff can turn to support from a range of groups at the Trust ALOPECIA Impartial information and mutual support to cope with hair loss Jenny: 07760 95885, 0121 440 5794. jen@araucaria.demon.co.uk www.alopeciaonline.org.uk
GROWN-UP CONGENTIAL HEART PATIENTS’ ASSOCIATION Supports young people and adults born with a heart condition. 0800 854 759.
PAIN FATIGUE SUPPORT Meets first Thursday of the month. Noon to 2pm, Erdington Methodist Church. 0300 330 0640 painfatiguesupport@hotmail.co.uk.
ANN CONROY TRUST Support/education for patients living with Syringomyelia & Chiari malformation. www.annconroytrust.org 0300 111 0004
HEADSTART BIRMINGHAM Aneurysm and Arteriovenous Malformation Support Group. Meetings are held on the first Friday of the month 7pm–9pm. Seminar room in outpatients department at QEHB. Patricia Hewlett 0121 459 7147
PATIENTS’ READING GROUP Meets Tuesdays, Weoley Castle Library. 2pm–3.30pm. To book: 0121 464 1664.
BECHET’S SYNDROME SOCIETY 0845 130 7329 info@bechetsdisease.org.uk. www.bechets.org.uk Birmingham contact: 07886 304018 anishaz@hotmail.co.uk
HEADWAY Acquired brain injury drop in service. Wednesdays 1.30pm–4.30pm wards 407, 409 & 411. 4.30pm–5.30pm. Second floor restaurant, QEHB. 0121 457 7541.
BREATHE EASY – THE SUPPORT NETWORK OF THE BRITISH LUNG FOUNDATION For everyone living with lung disease. Birmingham South Group meets monthly at Moseley Hall Hospital 2–4pm 03000 030 555 www.blf.org.uk BRITISH ACOUSTIC NEUROMA ASSOCIATION (BANA) BANA’s friendly West Midlands Group meet 3 or 4 times a year for mutual support, information exchange and to hear talks by specialist guests. admin@bana-uk.com 01246 550 011 www.bana-uk.com BRITISH SJÖGREN’S SYNDROME ASSOCIATION Support group for sufferers of the auto-immune rheumatic disease. 0121 478 0222 office@bssa.uk.net BSSA, PO Box 15040, Birmingham B31 9DP
HAEMATOLOGY SUPPORT GROUP Meeting at the Centre for Clinical Haematology on a monthly basis for information, social events, friendship and mutual support. 07766 875111 Haematologys@yahoo.co.uk. HAEMOCHROMATOSIS WEST MIDLANDS SUPPORT GROUP Offering support and raising awareness. We hold regular local meetings. 0121 457 8986 info@HaemochromatosisWM.org.uk www.HaemochromatosisWM.org.uk HOME FROM HOSPITAL CARE Free support to Birmingham patients on discharge from hospital Including information, shopping, befriending and respite care. 0121 472 4499.
BUSY Bs Support group for people with stomas and bowel disease. 0121 627 8343.
INSULIN DEPENDENT DIABETES TRUST Listening to people with diabetes and their carers. 01604 622 837 enquiries@Iddtinternational.org www.iddtinternational.org
CYSTITIS & OVERACTIVE BLADDER FOUNDATION Advice line: 0121 702 0820 info@cobfoundation.org www.cobfoundation.org
KIDNEY PATIENTS’ ASSOCIATION Runs local groups across the West Midlands. 01922 644 982 flintnf@aol.com www.kidneymatters.co.uk
DIABETES UK Regular support group meetings in King’s Heath for people with diabetes, family members and friends. www.diabetes.org.uk/In_Your_Area/Midlands and follow link to Birmingham janet.davenports@gmail.com
LARYNGECTOMY SUPPORT GROUP Meets monthly at British Legion social club, Quarry Lane, Northfield. A patient led group. Organised speakers at each session. 0121 627 2360 or 0121 627 2248.
DIGNITY IN CARE SUPPORT GROUP The group run the Memory Lane CafĂŠ for patients with cognitive impairment and their carers. CafĂŠ is open Wednesday afternoons. memorylanecafe@uhb.nhs.uk www.dignityincare.org.uk
LET’S FACE IT Support group for people with any form of facial disfigurement 01843 833 724.
D.I.S.C (DEMENTIA INFORMATION & SUPPORT FOR CARERS) A service offered specifically for CARERS of people with confusion and memory (DEMENTIA) problems. 0121 553 6483 carers@discbirmingham.co.uk www.discbirmingham.co.uk FACIAL PALSY UK Facial Palsy UK have launched a Midlands support group for any adult affected by facial paralysis, whatever the cause. lorraine@facialpalsy.org.uk 0300 030 9333 GET-A-HEAD Fundraising and support group for patients who have had head and neck cancer. 0121 371 5046 www.getahead.org.uk
MILITARY PATIENTS Military patients will be visited by a representative from the Royal Centre for Defence Medicine (RCDM) who will attend to their administrative, welfare, pastoral and spiritual needs. NATIONAL RHEUMATOID ARTHRITIS ASSOCIATION Birmingham group: www.brasg.org.uk Heart of England group contact 01628 823 524 National website: www.nras.org.uk OESOPHAGEAL PATIENTS ASSOCIATION (OPA) National charity offering support and information to patients and carers affected by oesophageal and stomach cancers. Birmingham group hosts two meetings per year. 0121 704 9860 enquiries@opa.org.uk www.opa.org.uk
PITUITARY FOUNDATION This group for patients, carers and friends meets at Queen Elizabeth Hospital Birmingham. For details of the dates of the meetings please visit our website birminghampituitarygroup.weebly.com 0845 450 0375 QE LIVER TRANSPLANT SUPPORT GROUP The group meets at 7.30pm on the 3rd Monday of every month (except July and August) in the Faith Centre, Meeting Room level 1, QEHB. 0121 627 2089 or 01902 679 333 (after 7:30pm). ROY CASTLE LUNG CANCER SUPPORT GROUP Held 1st Tuesday of every month, Birmingham Heartlands Hospital. 0121 424 1433 Lynne Reaper. THE NATIONAL OSTEOPOROSIS SOCIETY The National Osteoporosis Society runs a local support group based in Birmingham. 0121 429 7366 www.nos.org.uk THE STROKE ASSOCIATION Supporting people affected by stroke. 0303 303 3100 (Mon–Fri, 9am–5pm) info@stroke.org.uk www.stroke.org.uk BIRMINGHAM AND DISTRICT TINNITUS GROUP Practical support and advice for sufferers including group sessions and newsletters c/o Birmingham Institute for the Deaf, Ladywood Road, Edgbaston, Birmingham, B16 8SZ. Eileen: 01384 831032 info@tinnitusbham.org.uk TRACHEOTOMY SUPPORT New group for patients following tracheotomy. 0121 627 2248. VASCULITIS SUPPORT GROUP WEST MIDLANDS (VSGWM) For sufferers of Systemic Vasculitis (e.g. Wegener’s granulomatosis) as well as support for carers. The VSGWM circulates useful information and ideas, with friendly meetings held at least once a year. 0121 243 5621. WEST MIDLANDS BRAIN TUMOUR SUPPORT GROUP Meets in the Faith and Community Centre, first floor, QEHB on third Monday of the month, noon to 2pm. Sue Wreglesworth: 0771 7175 236. sue.wreglesworth@braintumouruk.org.uk WILSON’S DISEASE SUPPORT GROUP – UK National charitable group offering support and information to patients with Wilson’s disease and their families. For information and local support contact jerry@wilsonsdisease.org.uk www.wilsonsdisease.org.uk YOUNG ADULTS CANCER SUPPORT GROUP Is run by a group of young adult cancer patients to offer support for people who have similar needs. No strict age limit but current members in their 20s–40s. Meetings usually held last Wednesday of month at The Plough, Harborne. Vicky Stock: 0784 589 7760 stock.vicky@yahoo.co.uk
Steps have been taken to ensure this information is up to date, but please contact the group directly before undertaking a journey. Support group coordinators can email revisions to their entry to: communications@uhb.nhs.uk. Please mark the email – support group revision.
See www.uhb.nhs.uk for the latest news
University Hospitals Birmingham NHS Foundation Trust | MARCH 2017
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MARCH 2017 | University Hospitals Birmingham NHS Foundation Trust
No. 3613
Your monthly puzzle challenge Quiz Challenge
CROSS CODE 26
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3. In which sport are the terms serve, dig and spike used?
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4. Which poet wrote The Land of Heart’s Desire?
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5. Which numbering scale is used to determine the ratio of speed to velocity of sound?
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2. By what title was the British military leader Sir Arthur Wellesley better known?
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1. After their invasion of Britain what name did the Romans give to the area that is now Scotland?
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EACH number in our Cross Code grid represents a different letter of the alphabet. You have three letters in the control grid to start you off. Enter them in the appropriate squares in the main grid, then use your knowledge of words to work out which letters should go in the missing squares. As you get the letters, fill in other squares with the same number in the main grid and control grid. Check off the alphabetical list of letters as you identify them.
MAGIC SQUARE
LOCATE A COATED MAP
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HOW many words of four letters or more can you make from this Nonagram? Each word must use the central letter, and each letter may be used only once. At least one word using all nine letters can be found. Guidelines: 16 Good; 19 Very Good; 22 Excellent. Any word found in the Concise Oxford Dictionary (Tenth Edition) is eligible with the following exceptions: proper nouns; plural nouns, pronouns and possessives; third person singular verbs; hyphenated words; contractions and abbreviations; vulgar slang words; variant spellings of the same word (where another variant is also eligible).
USING all 16 letters of the phrase above, form four words each of four letters which will fit in the grid to form a magic square in which the words can be read both horizontally and vertically.
SPELL out a 15-letter word or phrase by moving from one chamber to another within the pyramid. You may only enter each of the chambers once and may only O proceed through openings in the P walls. The first letter may appear in any D E chamber.
AE
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Hard
EACH row and each column must contain the numbers 1 to 9, and so must each 3 x 3 box.
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6 8 7 2 7 1 9 4 8 3 6 2 1 6 5 1 3 5
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EASY SUDOKU 2 8 3 9 6 7 1 4 5
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HARD SUDOKU 8 2 6 1 3 4 5 9 7
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MAGIC SQUARE: atom; type; open; mend. WORD PYRAMID: Telephone number. EQUALISER: Clockwise from top left – add; subtract; multiply; divide. Total: 9.
Sot; 23 Melodrama.
Down – 1 Bat; 2 Oread; 3 Observe; 4 Jerkin; 5 Bacup; 6 Seen off; 7 Litheness; 9 Undresses; 12 Subject; 14 Allowed; 15 Hymnal; 17 Scrum; 19 Theta; 21 Lea. QUICK CROSSWORD: Across – 1 Focus; 4 Impetus; 8 Applaud; 9 Purge; 10 Egret; 13 October; 17 Fro; 18 Salami; 19 Action; 20 Lax; 22 Bobsled; 25 Octet; 28 Longs; 29 Unaware; 30 Systole; 31 Yield. Down – 1 Flake; 2 Caper; 3 Slant; 4 Indoor; 5 Pipit; 6 Throb; 7 Sneer; 11 Guano; 12 Exams; 14 Coax; 15 Optic; 16 Evoke; 17 File; 21 Adduce; 22 Bolus; 23 Bonus; 24 Lasso; 25 Ovary; 26 Trade; 27 Tweed.
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ACROSS 1. Not a very big investment in agriculture? (12)
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DOWN 2. Dressmaker finds that times do change (7) 3. Is this what the filthy rich possess? (5)
9. Introduce novel cut (9)
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HERE are two miniature fivesquare crosswords using the same grid – but the letters have been mixed up. You have to work out which letters belong to which crossword.
EQUALISER 7 3 5 2 3 2 2 8 2 3 2 6
10. A couple of pounds? That’s everything (3)
6. I raised another question initially with one Middle Easterner (5)
13. Escort moves to the island (6) 15. Private remarks from assistants holding old Bob (6)
7. Swimmers here enjoy no privacy (8,4)
8. Still she works when her employer is looking! (7,5) 18. After a short time I’ve another 14. Encourage her once film (5) upset (5,2) 20. Beastly prince? (4-3) 16. Propriety of month with no drink (7) 22. He is showing a level of sporting proficiency (3) 17. Sheet with pole on the worktable (6)
23. Decaying line in Hyde Park (6,3)
19. Planetary lover (5)
24. Not getting remission for good conduct? (6,2,4)
21. Nothing green in the open (5)
QUICK CROSSWORD 1
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All puzzles on this page are supplied by Sirius Media Services. To try more of our puzzles interactively online go to www.puzzledrome.com
arty; author; AUTHORITY; auto; hart; hotty; hurt; hutia; iota; oath; oaty; ratio; ratty; riot; rota; roti; rout; ruth; rutty; ryot; tahr; taro; tarot; tart; tarty; taut; that; thirty; thoria; thou; throat; throaty; thuya; tort; tour; tout; trait; tray; trio; trot; troth; trout; troy; truth; tutor; tyro; youth; yurt.
5. Cough medicine for fifty in Connecticut (US) (7)
12. He takes things the wrong way (5)
Perform the first calculation in each line first and ignore the mathematical law which says you should always perform division and multiplication before addition and subtraction.
NONAGRAM:
4. Lady’s top arrangement? (6)
11. A nest I’d rebuilt as an alternative (7)
PLACE the four signs (add, subtract, multiply, divide) one in each circle so that the total of each across and down line is the same.
QUIZ CHALLENGE: 1 Lord Nelson; 2 Argentina; 3 Sheep; 4 It is the name of a crater; 5 The wrist; 6 Turkey; 7 Martin Chuzzlewit; 8 Canada; 9 FIVE ALIVE: A sand trap; 10 George I. (1) Across – Rapid; Bonce; Drawl. Down – Rabid; Panda; Dwell. CRYPTIC CROSSWORD: CROSS CODE 1 2 3 4 5 6 7 8 9 10 11 12 13 Across – 1 Book of Job; 6 Sal; 8 Treasure-chest; 9 Under; 10 Implode; (2) Across – Bonus; Arena; Speak. M B K I W T R D V L Q O S 11 Dosser; 13 Baffle; 16 Embassy; 18 Lotus; 20 Steering wheel; 22 Down – Beams; Niece; Shank. 15
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PREVIOUS SOLUTIONS
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PZ1P3613 © Sirius Media Services Ltd
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FIVE ALIVE TF
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6. Piraeus is the chief port of which European country? 7. A chatelaine is the keeper of which type of building? 8. Actress Emma Stone played the teenage love interest of a young super-hero in which 2012 film? 9. What word can mean an argument, a crossbow bolt and a diamond-shaped piece of glass? 10. Ragusa was the former Italian name for which historic city on the Adriatic Sea?
WORD PYRAMID
O F T
ABCDEFGHIJKLMNOPQRSTUVWXYZ
CRYPTIC CROSSWORD 1
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ACROSS 1. Pilot’s compartment (7) 5. Robes (5) 8. Nocturnal bird (3) 9. Link (7) 10. Protective garment (5) 11. Knowing (5) 13. Hermit (7) 15. South American country (4) 17. Former Spanish currency (6) 19. Orb (6)
listening to you Contact the editor: Annie Roberts, news@QEHB, Communications Office, University Hospitals Birmingham, Mindelsohn Way, Birmingham B15 2TH Email: annierhealth@gmail.com Designed by graphics@uhb.nhs.uk
22. Scottish dance (4) 24. Nil (7) 26. Overturn (5) 29. Mentally perceptive (5) 30. Support (7) 31. Deep hole (3) 32. Grilled bread (5) 33. Misgiving (7) DOWN 1. Chocolate drink (5) 2. Latin American dance (5) 3. Moral principle (7) 4. Walk unsteadily (6)
5. Clearing in wood (5) 6. Martial (7) 7. Genuine, earnest (7) 12. Suffering (3) 14. Stratagem (4) 16. Deserve (4) 17. Long narrow flag (7) 18. Mandarin orange (7) 20. Ransack (7) 21. Fish eggs (3) 23. White herons (6) 25. Clumsy (5) 27. Sweet sticky liquid (5) 28. Topic (5)
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ey Park
nue
m Ave
Road
sha Hintle
ar Park D
Centre for Clinical Haematology
Busy Bees Nursery
Birmingham Women’s Hospital
Shuttle
Cancer Centre
Staff Car Park F
Shuttle
ITM
ITM Imaging Cent re
5
4 Heritage Building
(Queen Elizabeth Hospital)
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Parking on the Queen Elizabeth Hospitals site
QEHB Parking – Car Park A
When visiting our hospitals we recommend the following car parks: Queen Elizabeth Hospital Birmingham use Car Park A Heritage Building (Queen Elizabeth Hospital) use Car Park D Emergency Department (A&E) or CDU use Car Park D If you are using a sat nav, please make sure it has been updated recently. The post code B15 2GW will bring you onto the hospital site. Once on site, please follow road signs to the relevant car park.
Visitor and Patient (non - A&E & CDU)
Learning Hub
hn Way Mindelso
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ss fo
Acce
ly
ts on
en resid
Shuttle
The Barberry (BSMHFT) The Oleaster (BSMHFT)
Shuttle
Selly O ak
Harbor
Hospital entrances
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B
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Sai
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in irm
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/ Patient / Visitor (non - A&E & CDU)
Shuttle
lso
University Station
Main Entrance
Ambulances & Buses only
in de
Medical School
Queen Elizabeth Hospital Birmingham 1 Staff Car Park B1
Shuttle
Staff Post Car Park E Graduate Centre
Clinical and drop-off Decision Unit (15 mins waiting only) (CDU) entrance
Access to Busy Bees and Staff Car Park F only
2
M
Shuttle
n Way Mindelsoh
3
A&E entrance
Nuffield House
C tient Visitor / Pa U / A & E / CD Shuttle
Fisher Centre House Club
Pedestrian route
Disabled parking
Drop-off only
Bus Stop Centro/WM Cycle storage
TAXI Shuttle
Outpatients and all wards and departments
2
West Entrance (all wards and departments, Heritage Building)
3 4
Cancer Centre
5
Institute of Translational Medicine
6
East Block Day Unit
Selly Oak
Info desk
Parking
1
Taxi rank Shuttle bus Smoking shelter
The free shuttle bus service runs from 07:00–19:00 Monday–Friday (excluding Bank Holidays)
Main Entrance (all wards and departments, Heritage Building)
Community Orchard and Gardens www.uhb.nhs.uk/orchard
Correct at 27 February 2017
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