Inspire Magazine | Issue 1, Volume 3 | January 2025
Issue 1, Volume 3
January 2025
Bethesda was established to support people where there were no other supports available.
To this day, and following the footsteps of the Wiebe’s, Bethesda prides itself on being a leader in providing innovative, quality supports and services to the most vulnerable people in our community.
Within this issue of INSPIRE, you will learn how implementing the Choice and Partnership Approach has assisted us in getting people access to their services quicker, the importance of psychological assessments, how we adjusted our services to improve services through rapid counselling and more.
Bethesda has established key strategic projects to continue to improve the quality of supports and services we provide to people, including partnerships with Brock University, University at Buffalo, and Indiana University Bloomington to establish a robust qualitative evaluation process while striving to become a leader in TraumaInformed Care for people with developmental disabilities.
Paul McGowan Chief Executive Officer
A key element throughout all of our research and programs is ensuring that the voices of people with lived experience are heard. Last year, Bethesda’s Foundation supported piloting a Peer Facilitator Program. I hope you will be inspired as you learn of the impact this program has had and why the Foundation continues to support it through the generous donations of our community.
Ultimately, all people need to be heard. Heard to understand their needs. Heard to improve our supports and services. Heard to help each other.
A key element throughout all of our research and programs is ensuring that the voices of people with lived experience are heard.
Nothing for Us Without Us
Bethesda’s Peer Facilitation Program is cultivating a new generation of compassionate leaders. These young individuals are making a significant impact on their peers through their dedication, empathy, and unique skills.
During 2020, when the world had been shut down by COVID-19, Bethesda Adult Clinical was approached by the Ministry of Children, Community and Social Services to develop a Mental Health Initiative. This Initiative was to provide opportunities to improve the Mental Health of adults with developmental disabilities and their caregivers from the effects of isolation and program closures. We were able to offer a number of virtual groups for a variety of topics. During these groups, the clinicians noted how receptive individuals were to hearing from their peers who shared their experiences. Individuals were looking to these peers as role models or mentors. As the Mental Health Initiative was coming to an end, participants of our virtual Saturday Social Group advocated to Bethesda about the need to keep this program going. Four members of the Saturday Social volunteered to be peer facilitators and work alongside a clinical facilitator in keeping the group up and running. Since this time, Bethesda Foundation has provided grants to Adult Clinical Services.
Through these grants, we have been able to develop: a Peer Facilitation Curriculum and Training Program, expanded the number of Peer Facilitators and opportunities to assist in other clinical groups and Peer Facilitators now receive an Honorarium payment for the time and investment they have made to Bethesda.
As clinicians, we have years of education and experience to guide our practices, however, for many of us, we do not have the lived experience of having an intellectual and/or developmental disability. Therefore, it is important to bring the voices of the people with that experience to our programming, using a “nothing for us without us” philosophy. “You cannot truly empathize with the recovery process by only studying it or reading about it, the same way that you cannot truly emphasize unless you have lived it” (Dianna Capponi, CAMH)
“Connecting with another person who has lived with a similar problem, or is perhaps still doing so, can be a vital link for someone struggling with their own situation. Peer support can be an effective prevention strategy, can moderate the effects of life-challenging events and provide a sense of empowerment. Research also indicates that peer support can help a person gain control over their symptoms, reduce hospitalization, offer social support and improve the quality of life. The information, empowerment and hope that comes from someone who has been in their shoes can help a person better navigate the sometimes complicated maze of treatments and other forms of assistance.”
(Mental Health Commission of Canada, 2013)
In Bethesda’s Peer Facilitation program, Peer Facilitators partner with clinicians to facilitate groups. Peers are matched with Speech Language Pathologists, Social Workers, Behavioural Consultants and Psychometrists. As Peers, they strive to represent the Vision, Mission and Values of Bethesda. Peers help provide feedback and suggestions for group content. Peers can assist with both virtual and in-person groups. Support is provided across our clinical catchment areas of: Niagara, Hamilton, Brant and Haldimand.
Benefits of Becoming a Peer Facilitator:
• Enhance leadership and professional skills
• Financial compensation
• Interview and teamwork skills
• Most importantly, provide others with hope, empowerment and recovery
The Bethesda Peer Facilitators have created their own mission statement based on their experience with the program:
Peer facilitation is helping people grow and become their best self, enhancing confidence through the encouragement and inspiration of others.
We asked our Peer Facilitators to brainstorm “What
is Peer Support?”
How to Become a Peer Facilitator:
REQUIREMENTS
• Lived experience with group content (i.e. mental health challenge, behavioural challenge, health-related challenge) and have an intellectual and/or developmental disability. It is helpful to attend a group offered through Bethesda to understand the foundational information and experience it has on a person supported.
• In addition, we ask the Peer Facilitators come with: readiness, resilience, strong communication, critical thinking, teamwork skills, ethics and reliability.
Steps for Joining as a Peer Facilitator
1. Attend an information session to learn about the Peer Support Training process and receive the Bethesda Peer Support Workbook.
2. Complete the Peer Support Workbook on your own time. Answering the questions within the workbook and then connecting with the Bethesda team to schedule a follow up session.
3. Meeting with the team to review the completed workbook and to share your feedback.
4. If steps 1-3 were completed successfully, you will be invited to attend an interview for the potential of becoming a Peer Facilitator.
5. If you are chosen to be a Peer Facilitator, you will be scheduled for a group and will be provided the dates/times.
David
Meet some of the Bethesda Peers!
What do you like about being a Peer Support Worker?
What makes you a good Peer Support Worker?
Group(s) you have helped with:
My favourite group(s):
Skills I have learned from my work with Bethesda:
Would you recommend this program to someone else?
What did you have to do to become a Peer Support Worker?
Something unique about you:
What do you like about being a Peer Support Worker?
What makes you a good Peer Support Worker?
Group(s) you have helped with:
My favourite group(s):
Skills I have learned from my work with Bethesda:
Would you recommend this program to someone else?
What did you have to do to become a Peer Support Worker?
Something unique about you:
• Working alongside another facilitator
• I listen to people sharing in the group, without interrupting them
• Mindful Me & Grief Support
• The Wonder of Me & Mindful Me
• Confidence and Bravery
• Yes, I would
• I had to fill out a book and answer questions
• I make cards of encouragement for loved ones
• Talking to others in the group
• I listen to all the people in the group
• Saturday Social & Zones of Regulation
• Saturday Social
• How to take care of people
• Yes, I would
• I had to do a workbook
• I am very friendly
Janine
Autumn
What do you like about being a Peer Support Worker?
What makes you a good Peer Support Worker?
Group(s) you have helped with:
My favourite group(s):
Skills I have learned from my work with Bethesda:
Would you recommend this program to someone else?
What did you have to do to become a Peer Support Worker?
Something unique about you:
What do you like about being a Peer Support Worker?
What makes you a good Peer Support Worker?
Group(s) you have helped with:
My favourite group(s):
Skills I have learned from my work with Bethesda:
Would you recommend this program to someone else?
What did you have to do to become a Peer Support Worker?
Something unique about you:
• Helping people, I really like being on the team
• I am friendly, nice and kind. I am becoming more outgoing
• Smart Speakers, Saturday Social, I hope to help with Art & Wellness in the future
• Saturday Social & Smart Speakers
• I have become more confident in myself. I am more comfortable talking to a group
• Yes, to learn
• I completed a training and a workbook. I also had an interview
• I am talented at diamond art. I also love to paint!
• I like to help where I can and to teach
• I try to be including of everyone, remembering people in the (group) chat
• Saturday Social & Connection Corner
• Saturday Social
• Patience, teamwork and understanding
• Definitely!
• I watched for opportunities and asked
• I have two pet reptiles; a bearded dragon and a leopard gecko
Jacob
What do you like about being a Peer Support Worker?
What makes you a good Peer Support Worker?
Group(s) you have helped with:
My favourite group(s):
Skills I have learned from my work with Bethesda:
Would you recommend this program to someone else?
What did you have to do to become a Peer Support Worker?
Something unique about you:
• Being able to socialize with everyone
• I understand my peers, I am friendly
• Saturday Social & Art & Wellness
• Saturday Social
• Being patient and respecting others
• Yes
• Finish the book
• I like being outside!
What do you like about being a Peer Support Worker?
What makes you a good Peer Support Worker?
Group(s) you have helped with:
My favourite group(s):
Skills I have learned from my work with Bethesda:
Would you recommend this program to someone else?
What did you have to do to become a Peer Support Worker?
Something unique about you:
• Meet new people. I like helping people learn new things
• I am a good listener, good helper and enjoy helping people
• Peers
• Peers
• Listen to people, be organized, and be prepared
• Definitely!
• Give my resume, go to an interview
• I am a team player, happy & confident.
Technology Use Children and Youth with Autism
Why Do Children and Youth with Autism Gravitate Towards Technology Usage?
Research using fMRI (brain scans) to map changes in neural activity when exposed to different stimuli has revealed intriguing findings. When comparing children with and without Autism Spectrum Disorder (ASD), the ventromedial prefrontal cortex showed a significantly diminished response in the ASD group when exposed to an image of a preferred person (Kishida et al., 2019). However, this brain region’s response was much more similar between the two groups when shown an image of a favorite item.
Technology and Autism Spectrum Disorder: Does It Help Them Learn?
Over the past decade, research has demonstrated that using technology, such as virtual reality or video games, can be more effective for teaching individuals with ASD than traditional methods (Valencia et al., 2019). For example, games like CopyMe have successfully taught imitation skills, a critical skill for learning through observation.
Furthermore, assistive technology has proven beneficial for individuals with ASD who struggle with executive functioning, helping to compensate for these challenges (Desiderl et al., 2020). This indicates that technology can play a significant role in supporting and enhancing learning for those with ASD.
This suggests that children with ASD often do not encode the value of social exchange in the same way as their neurotypical peers. Simply put, their brains prioritize non-social stimuli (e.g., technology, toys) over social stimuli (e.g., friends, family). Given the challenges individuals with ASD face in navigating social interactions, it’s no surprise that engaging with an iPad, for instance, feels more comfortable and rewarding for them.
Is there a Benefit to Using Technology in Psychotherapy?
Yes
Research indicates that Therapists report greater improvements in the mental health of children with ASD when technology is incorporated into therapy sessions (Chistol et al., 2024). Technology provides an engaging, non-threatening medium that can enhance therapeutic outcomes for children with ASD.
Can We Find a Balance?
While technology offers many benefits, it also comes with potential downsides, such as its impact on attention and mental health. The key question remains: Is it possible to strike a balance? Would there
be negative consequences if children with ASD were completely restricted from using technology? Finding a middle ground may be critical in supporting their development while mitigating potential harms.
Proactive Strategies for Managing Screen Time
Adjusting your family’s technology use often involves new routines, expectations, and limits on preferred activities. This can lead to some frustration for children. Proactive Behaviour Strategies (PBS) are tools to prevent interfering behaviours before they arise, making transitions smoother.
We’ve summarized these strategies using the P.A.R.E.N.T. acronym:
PPractice your own screen-free habits: Model engaging screen-free activities such as playing, cooking, or crafting. When your child sees you enjoying these activities, they’re more likely to imitate you.
AAvailable items: Provide multiple screen-free options like books, puzzles, building toys, stuffed animals, sports equipment, or craft supplies. Outdoor activities and sensory toys (like fidgets or slime) can also keep children engaged.
RRoutine reminders: Prepare children for changes to their screen time routine. Use priming to explain new rules ahead of time and transitional warnings (e.g., “5 more minutes until the iPad is all done”) to ease transitions.
EEstablish limits: Gradually decrease screen time to reach your family’s goal. For example, if your child currently has three hours of screen time daily and the goal is one hour, start by cutting back to 2.5 hours and continue reducing until you meet your target.
NNurture play skills: Some children may need help learning how to play. Model activities, narrate what you’re doing, and follow their lead to teach them how to engage in independent play.
TTeach and offer choices: Set expectations and empower children by offering limited choices. For example, “The tablet is all done now. Would you like to colour or go outside to play?” Providing alternatives helps children feel in control while still adhering to screen time limits.
Replacement Activities
If your child has a hard time stepping away from screens, functional replacement activities can help by mimicking the engaging aspects of digital content. Consider these ideas:
Shows or characters: If your child loves a specific show or character, find books, toys, or games featuring that theme. This continuity helps maintain the fun and rewarding aspect of the activity.
Building games: For children who enjoy games like Tetris or Minecraft, hands-on activities like building with blocks, Legos, or magnetic tiles offer creative, screen-free alternatives. Crafty kids might enjoy
Rewarding Screen-Free Activities
Positive reinforcement is key to sustaining these changes. Praise your child when they engage in replacement activities with comments like, “I love seeing you build with your blocks!” or reward them with small treats or stickers. Rewards make screen-free activities more
making structures out of cardboard and paint.
Sports games: Sports video games can be replaced by playing real-life sports or even just watching games in your community. For children less inclined toward athleticism, practicing small skills like throwing or kicking can still tie into their interests.
Visual stimulation: If your child is drawn to the bright lights and sounds of screens, consider toys with lightup effects, dynamic visuals, or silly sounds. Sensory projectors or spinning light toys are also excellent options.
appealing and help establish lasting habits. By implementing these strategies, you can reduce screen time while supporting your child’s social, physical, and cognitive development.
When adjusting screen time expectations, even with proactive strategies in place, interfering behaviours may still arise. This is understandable, as new routines and expectations can be challenging. Before responding to these behaviours, it’s important to assess our own emotional state. Some days, we might be calm and able to manage a tantrum, while other days even small issues can feel overwhelming. Understanding our headspace helps determine how to respond effectively—on good days, calmly enforcing limits and co-regulating with our child, and on stressful days, adjusting our response as needed.
Here are two strategies for managing screen time adjustments and handling challenging behaviours:
Reducing Expectations
On high-capacity days, you may address behaviours like slamming the iPad. On low-capacity days, focus on the primary goal (like turning the screen off), and address the behaviour later when you’re feeling more regulated.
Prioritizing Expectations
On good days, you can manage multiple screen time rules. On tougher days, focus on just the most important expectations, like limiting screen time or keeping devices out of the bedroom.
Here’s a tip: When you’re having a low-capacity day, it’s okay to “pick your battles” and back down, but do it early. If you give in at the start of an outburst, it reduces the chances of escalating to bigger behaviours, like physical aggression. For example, if your child raises their voice when asked to turn off a device, giving them an extra 15 minutes might be better than letting the behaviour escalate to throwing or aggression. Early backing down can help prevent reinforcing more intense behaviours.
How to Help Your Child Cope when Limiting Technology Usage
If limiting technology use causes distress for your child, distress tolerance and mindfulness exercises can help them regulate their emotions. These tools can provide support as they navigate changes in their routine, fostering resilience and adaptability. n 4 seconds Breathe In Breathe Out
A Collaborative Pathway to Justice
Bethesda’s role in Niagara’s Mental Health and Drug Treatment
Court
People with Intellectual and Developmental Disability (IDD) are over represented in the criminal justice system. Navigating the justice system as an accused can be extremely complex and challenging. It involves complex language, court processes, nuanced procedures and expectations that can pose a significant challenge for those with IDD. When considering the involvement of those with IDD in the court system, it is paramount to consider how the system itself can alter its approach to justice to reduce the rate of recidivism and the revolving door of engaging in criminal activity.
In October 2023, the Niagara Region launched the Mental Health and Drug Treatment Court (MHDTC). The role of this court is to provide a therapeutic and collaborative approach to justice while still taking into account public safety. This court is geared to those with mental health, substance use issues and/or intellectual and developmental disabilities. As opposed to working in silos, justice professionals and
community agencies have come together to provide an innovative way of diverting accused from the criminal justice system. Bethesda’s Dual Diagnosis Justice Case Management (DDJCM) program plays a pivotal role in providing support and advocacy in ensuring those with IDD are recognized within the court and supported throughout the process.
To be accepted into the MHDTC, an application is put forth in collaboration with the individual, defence counsel and Bethesda’s DDJCM (or other service providers). This application includes a proposed rehabilitative plan that outlines what services and supports the individual will engage with. As opposed to being developed ‘for’ the individual, the plan is developed ‘with’ the individual to ensure that the goals are person centred and individualized.
This plan often includes connecting with various services spanning across many community sectors including; developmental services, mental health services, addictions and housing supports. The DDJCM then submits the application to the Crown for consideration. If admitted into the court, the DDJCM assists the individual in connecting to services, provides advocacy and individual progress updates to the MHDTC team at scheduled pre-court meetings and attends bi-weekly court dates.
“Bethesda’s Dual Diagnosis Justice Case Management (DDJCM) program plays a pivotal role in providing support and advocacy...”
Since the courts inception, Bethesda’s justice case management program has supported 20 individuals in the court with a total of 6 graduations thus far. This court has the ability to take into account the underlying reasons of the offending behavior and provides a more therapeutic approach to resolution that often results in reduced sentencing or charges being withdrawn. Being diverted from the traditional criminal justice stream to mental health court has enabled individuals to be connected and engage with services in the community that ultimately has the potential to reduce recidivism and result in individuals we support making life long connections that can have a positive impact on their lives. n
Adult Clinical Away Day: Throwback to the 80 s and 90 s
Celebrating teamwork, building relationships, and collaborating for better care in the spirit of the 80s and 90s!
The Fall Adult Clinical Away Day kicked off with vibrant energy, taking everyone back to a simpler time—when life was carefree, big hair and bold patterns ruled, and we drank water straight from the garden hose. It was a day filled with connection, nostalgia, and impactful discussions aimed at strengthening the collaboration between departments, as well as fostering a unified approach to providing the best care for individuals and staff at Bethesda.
Morning Session: Strengthening Partnerships
The morning was all about fostering strong partnerships between Bethesda’s Adult Clinical team, Niagara Regional Police (NRP), and Victim Services Niagara. These discussions focused on how all parties can better support individuals during crises, working together to advocate for and meet the needs of vulnerable individuals with a trauma-informed approach.
• Niagara Regional Police (NRP): Shared valuable insights on how they collaborate with Bethesda to ensure safety and well-being, highlighting the importance of a team approach when supporting individuals in crisis.
• Victim Services Niagara: Spoke about their role in providing immediate mental health counseling, grief support, and the collaboration with NRP to offer quick and effective interventions for those in need of services.
These discussions were enriched by the exchange of both success stories and challenges, allowing staff to reflect on the partnership’s strengths and identify areas for growth. The session closed with a heartwarming initiative: teddy bears from Calendar Club Canada, delivered by Beatties Business Products, were adorned with words of encouragement and happy images by the Adult Clinical team. These bears will be distributed in ‘HUG’ kits to provide comfort to individuals served by Victim Services Niagara during times of crisis. A perfect example of full-circle collaboration in action.
Afternoon Session: Team Building with a Nostalgic Twist!
In the afternoon, the team engaged in a series of fun and nostalgic team-building activities from the 80s and 90s. Staff participated in classic games like Bop It!, which challenged everyone’s reflexes and coordination in a fast-paced competition. Skip-It and Double Dutch got everyone moving and reminiscing about the playground games of their youth. 80s and 90s trivia, testing everyone’s knowledge of pop culture from those decades, and sparking friendly debates about the best music, movies, and TV shows of the era.
To wrap up the day, a flashback slide show featured hilarious and heartwarming photos of the Adult Clinical team from the 80s and 90s, bringing back memories and generating lots of laughs. These activities not only encouraged team bonding but also provided a light-hearted way to reflect on shared experiences and create new memories together.
A Day Well Spent
The event was more than just a retreat—it was a chance for staff to come together, reflect on their collaborative efforts, and reaffirm their shared mission of providing compassionate, trauma-informed care. The teambuilding activities helped solidify those relationships, while the morning discussions about community collaboration strengthened the team’s commitment to providing the best care for those in need. By coming together, having fun, and reflecting on both the successes and challenges, the Away Day reinforced the importance of working together as a united team—both within Bethesda and with the broader community partners like NRP and Victim Services Niagara. n
JOURNEY TO CAPA Adult Clinical Services’
Choice And Partnership Approach
“Change is inevitable, but transformation is a choice.” - Heather Ash Amara
Adult Clinical Services has been on a journey of transformation since 2017. While there is always some benefit in looking back to see how far we have come (milestones are celebrated for a reason!), there is also a need to be forward facing and looking at where we want to be and how we want to be in the future. It was from this examination of where we wanted to be in the future that our journey to CAPA began. At the time that this transformation began, there were over 800 people waiting for services.
The first step in this journey was to undertake an extensive look at the services being provided, noting five areas of focus: impact on people and families, ways to offer/deliver services and supports, human resources and culture, program measures and clinical best practice and connectedness of services. This was a comprehensive review that not only involved reviewing documents, relevant research and literature but also engaging people who were using our services, families, other service providers, community members, experts in relevant fields and the clinical team. In all, approximately 198 people were involved in this process through focus groups, electronic surveys and interviews. We wanted to know what mattered most, how people viewed the quality of Bethesda’s services, what services should be kept and built upon and what might be improved.
From here, a journey map was developed to help guide this clinical transformation. People Minded Business (PMB) was engaged to help the clinical team navigate the challenges of change and to inspire everyone through PMB’s Innovation+Quality (I+Q) Strategy. Beginning in 2018, the clinical team began the exciting and sometimes terrifying work of transforming our services. We knew that while there were so many things that we did well, there were also many areas that needed to improve and change. The clinical team were challenged to adopt inquiring minds, using a framework of “How might we….” to explore different ways to address the needs that were highlighted in the aforementioned survey. From this point, pilot projects were launched and evaluated. Throughout this process, there was collaboration with the people accessing our services, as well as their supports, other service agencies and community partners to ensure that we were on the right track.
The clinical team was introduced to the Choice and Partnership Approach (CAPA) to service delivery. This model of service delivery was developed in the UK by Ann York and Steve Kingsbury. CAPA has been implemented in many CAMHS (Child and Adolescent Mental Health Services) agencies, including learning disability teams in the UK, Australia and New Zealand, Belgium and Canada.
But what exactly is CAPA?
It is a model that combines collaborative and participatory practice with people using our services to enhance effectiveness, leadership, skills modelling and demand and capacity management. The CAPA model of service delivery emphasizes flexibility and tailoring to the person’s individual wants and needs. This allows the clinical team to do:
• the right things because everyone involved (the person accessing service, their support and the clinician) have a clear working goal of what the person wants to work on
• with the right people (the clinician with the appropriate clinical skills is working with the person)
• at the right time (without any external or internal waits)
The initial stages of CAPA implementation started in August of 2018 and by March of 2019, one of the key concepts of CAPA – Choice, was launched through the use of CHOICE appointments. The goal of the Choice appointment is to provide the person with as much choice as we can to actively engage them in working together on what matters most to them. We strive to maintain one of the key philosophies of CAPA in all of the work that we do in that we are always keeping the person’s viewpoint and wishes at the centre of what we do.
By providing as much choice as possible, we see more effective and collaborative engagement with the person and their supports to meet the goals established in Choice. While all of the clinicians on the clinical team are skilled, we also approach the
work that we do with people with the stance of being “facilitators with expertise.” We are here to help the person come to mutually agreed-upon goals that will help address what their current concerns are.
Throughout the past six years, the clinical team has continued to transform the work that we do and the services that we provide. In 2022, the clinical team worked at developing definitions for core (all clinicians could implement) and specific (specialized training required) skills to help ensure that we are continuing to follow the philosophy of “right service, right clinician, right time.” The team was even able to continue to work through implementation of the CAPA model during the global pandemic from 2020-2023, navigating a whole new world of virtual service delivery.
The clinical team now has an Adult Clinical Services Guide that outlines what to expect in a Choice appointment, descriptions of each of the services provided either with 1:1 options as well as groups for people and their supports (families, caregivers, agencies, etc.) and a calendar for groups offered throughout the fiscal year. Early in 2024, the CAPA Coordinator position was created. The CAPA Coordinator, in addition to being a champion for CAPA, is the first point of contact to people once referrals are received from Developmental Services Ontario through the use of a Welcome Call and a Welcome Email.
As the clinical team has continued to implement CAPA, we have seen so many benefits, which has continued to transform and build upon the work that we are doing. Since April 2022, we have seen dramatic decreases in wait times for all of our services.
“Transformation is not a destination; it’s a journey of continuous growth and self-discovery.”
- Tony Robbins
What we know and appreciate about our CAPA journey is that it continues and we see so many benefits of this service delivery model. While we appreciate and celebrate reduced wait times, what this means for the people that we support and serve is this – we are able to meet people where they are at, help them with what concerns them most and as a result of “right service, right person, right time”, we are able to help people with real and meaningful change. n
COMMUNITY RESPONSE PROGRAM (CRP)
The CRP program provides intensive and highly specialized services to adults with a Developmental Disability who frequently engage in challenging behaviour such as aggression, self-injury, property destruction, and/or sexualized behaviour that poses a risk to self, others, or the environment and cannot be safely and effectively treated in a less intensive program and/or with medication.
The services offered through CRP are delivered at different intensities depending on the needs of the community and clients.
Our Pathways
The Community Response Program has seven program components:
• Open Registration Community Workshops
• Outreach Services (programs below are assessed and referred internally through outreach)
• Community Trainings and Workshops
• Event Nights
• Assessment Bed
• Community Treatment Program
• Intensive Treatment Program
What is it?
The Community Response Program’s (CRP) event nights are themed nights filled with fun activities such as crafts, themed activities, music, movies, sensory activities, and games for complex individuals. Throughout the night Individuals have an opportunity to socialize, engage in games with peers or staff or complete independent activities while enjoying snacks.
How to Access?
EVENT N IGHTS
Who is it for?
Event nights are for complex individuals supported by Behaviour Supports in the 4 regions. Individual’s can come with their own support staff/caregiver or if appropriate can come independently to the event.
Please email Katherine Sanderson at ksanderson@bethesdaservices.com for referral information and for more information on when the next event is.
TESTIMONIAL
“Over the past few years Anthony has enjoyed Fun Nights hosted by Bethesda. He participates in activities and is always proud of the crafts that he completes and brings home from these events. He has actually mentioned “Bethesda” a few times as his way of telling us he would like to go to another Fun Night. We are so grateful for these events as it gives Anthony a chance to interact with others and try new things.”
-Parent of Attendee
Behaviour Resource Consultant
Katherine Sanderson is CRP’s Behaviour Resource Consultant. Katherine has over 8 years experience at Bethesda, majority of that has been spent working within the CRP department. While working in the community Katherine recognized a need for social events for individuals that also engage in challenging behaviour. Since then, Katherine has been coordinating CRP Event Nights at Bethesda. Katherine and the CRP team pride themselves on welcoming anyone that enjoys to socialize to their events and working together to overcome any challenges that may arise.
Board Spotlight
A Legacy of Service: Tom Wall’s Lasting Connection to Bethesda Board Member Tom Wall
For Tom Wall, a lawyer specializing in corporate law at Sullivan Mahoney LLP, Bethesda is more than a charity—it’s a family tradition and a reflection of his deepest values. With roots that stretch back to his Mennonite upbringing, Tom has been involved with Bethesda in various capacities since the late 1990s, from working at its former Oxford House location to serving on the board of directors for two separate terms.
Tom’s connection to Bethesda began during his university years at Brock University, where he balanced his studies with overnight shifts at Oxford House in St. Catharines.
“I grew up in a Christian, Mennonite kind of family, and the reason that’s important is because Bethesda has had that at its core since its inception,” Tom shared. “From there, I actually spent some time working overnights at Oxford House while studying to become a lawyer.”
Tom’s family ties to Bethesda run deep. His uncle, Jake Bolt, was also a board member and played a pivotal role in inspiring Tom to serve. “My uncle Jake called me up one night and mentioned he was leaving the board and I should take his place. That was around the year 2000,” Tom explained. His initial tenure on the board lasted until 20172018, when he took a brief break to reset. In 2022, however, Bethesda’s President, Bill Jackson, reached out and invited Tom to rejoin.
“Bethesda really speaks to me and is an organization that I felt was important to continue to be a part of,” Tom said. “I actually can’t think of a better organization to support.”
A Mission That Resonates
For Tom, Bethesda’s mission has always aligned with his personal philosophy of service. “Why the values of Bethesda still speak to me now is not so much the Christian aspect but more so the way we serve people— the manner in which we go about serving them—and just the overall mindset we apply. It’s exactly in line with how I think it should be done,” he shared.
This shared vision has kept Tom deeply engaged with Bethesda’s work, particularly its evolving focus on supporting individuals with autism. “Over the last five years or so, what’s been really nice to see is the development into the realm of autism,” Tom said. “I totally appreciate the work that’s been done so consistently for the developmentally disabled community. It’s something that should be lauded and has been done consistently well for many, many decades.”
Bethesda’s robust autism program is one of the aspects Tom values most. “Really, there are two parts to what is most significant to me about Bethesda,” he said. “Number one, just the fact that we have a very strong autism program — it’s great and a really essential part of what we do. Second, just the fact that the organization was willing to step into that space in the first place, recognize an area of need, and then apply its resources and expertise to it. It’s just awesome.”
A Family Man & Community Leader
Outside of his professional and volunteer work, Tom enjoys hockey, reading, and spending time with his family. His two daughters, now university students, remain a source of pride and joy. Through his varied interests and commitments, Tom exemplifies a balanced life dedicated to growth, family, and service.
Bethesda’s commitment to innovation and meeting community needs continues to inspire Tom as he helps guide the organization as a board member. Whether addressing the needs of the developmentally disabled or expanding its services in areas like autism, Bethesda’s work mirrors Tom’s belief in the importance of meaningful, compassionate care.
“I think the way Bethesda approaches serving people and finding innovative ways to meet needs is incredible,” Tom said. “It’s why I keep coming back and why I believe so strongly in what we do.”
For Tom Wall, Bethesda isn’t just an organization—it’s a calling. From his early days working at Oxford House to his current role as a board member, Tom’s dedication to Bethesda reflects his commitment to making a lasting impact in the Niagara community. Inspired by his family’s legacy and a shared vision of care, Tom continues to support Bethesda in its mission to empower individuals with intellectual and developmental disabilities, ensuring a brighter future for all. n
Board Spotlight Board Member Bill Janzen
A Lifelong Mission of Care: Bill Janzen’s Passion For Supporting Bethesda
For Bill Janzen, a long-time Niagara resident, entrepreneurship and community service have always gone hand-in-hand.
Alongside his wife, April, and their three children, Liam, Madeline, and Josiah, Bill has built a life centered on innovation, compassion, and family. From running multiple thriving businesses to supporting local and international causes, his journey eventually led him to Bethesda — a connection deeply rooted in personal experience and shared values.
Bill’s entrepreneurial spirit sparked early. “I think I’ve always had an entrepreneurial bug,” he shared. “I mean, I think I had my first job at nine years old. Growing up in Niagara-on-the-Lake, that meant packing peaches in barns and greenhouses. Eventually, I was tired of being hot and sweaty, and I volunteered at the Niagara-on-theLake Public Library. That led to a job helping people learn how to use computers, email, accessing the internet, even how to use a mouse.”
That early experience of teaching and connecting with others planted the seeds for what became Future Access, a business he started in high school and grew into a successful enterprise, eventually selling it in 2019. Today, he and April co-own a Yoga and Pilates studio in St. Catharines, but it’s clear Bill’s passion for helping others has always been a driving force in his life.
A Personal Connection to Bethesda
Bill’s connection to Bethesda began shortly after his son, Josiah, was born with Down syndrome. “He was diagnosed shortly after he was born,” Bill recalled. “While looking for resources and support for him, we found Bethesda.” Bethesda’s wide range of services, particularly for children with special needs, proved invaluable assistance to the Janzen family.
Bill’s journey with Bethesda furthered when he met Board President Bill Jackson, who introduced him to the idea of serving on the Board of Directors. “As we became more frequent users of Bethesda’s services, Bill asked if I would be interested in serving on the board, and I thought it was a really good fit. Bethesda’s mission, values, and its importance to our community is something I feel is really impactful and something I wanted to support.”
One of the aspects of Bethesda that Bill admires most is its approach to care. “The level of autonomy and independence that Bethesda strives to offer clients is amazing,” he said. “In other similar situations, I imagine clients wouldn’t be given the same opportunities. Bethesda respects and cares for its clients in a way that empowers them.”
He also draws parallels between his entrepreneurial mindset and Bethesda’s forward-thinking approach.
“Even though it’s a non-profit, Bethesda is creative in the ways it thinks about how to serve clients and the community at large. It’s a place where innovation meets compassion.”
Building a Better Future
Looking ahead, Bill is optimistic about Bethesda’s potential for growth and collaboration. “There’ll be new opportunities that come, and we’re really excited to get involved in more partnerships with the community. Getting sponsors and businesses involved — not just financially — will create more integration and reduce stigma.”
Over the years, Bill has seen progress in how society perceives intellectual and developmental disabilities. “The stigma around developmental needs or autism has significantly reduced over the last 20 years,” he said. “As Bethesda continues to evolve, I think that progress will only accelerate.”
Beyond his work with Bethesda, Bill and his family are passionate about giving back on a global scale. They have volunteered extensively in Africa, participating in international missions that align with their values of care and service. This global perspective underscores Bill’s belief in creating meaningful change, both locally and abroad.
Through his involvement with Bethesda’s Board of Directors, Bill and his family continue to make a difference in the lives of individuals and families in the Niagara Region. His dedication to promoting independence, reducing stigma, and fostering community partnerships reflects Bethesda’s mission to empower and uplift. For Bill, it’s not just about helping others — it’s about building a world where everyone has the opportunity to thrive. n
RAPID MENTAL HEALTH
Individuals diagnosed with Intellectual and/or Developmental Disabilities (IDD) are at higher risk for experiencing mental health concerns within their lifetime. Although many risk factors are the same to those without a diagnosis, those with IDD are often more likely to fall within these risk categories, increasing their likelihood of experiencing a mental health condition. Common experiences that can effect anyone’s mental health can include:
Financial Struggles
Many individuals with IDD are on income programs, leaving them with limited funds to purchase basic needs, or purchase needed items and supports. This also limits their ability to participate in activities that they enjoy.
Challenging Life Experiences
People with IDD are 4 times more likely to experience challenging life events, including emotional abuse, physical abuse, financial abuse, neglect, and bullying.
Limited Social Support
Individuals with IDD often find it challenging to start and keep peer relationships.
However, stigma, which is when people in society have negative beliefs, assumptions, or attitudes towards a certain group of people due to their situation in life, also plays a big role in the development of mental health conditions in individuals with IDD. Common stigmas include:
Unable to be Independent
Many people assume that those with IDD do not have the skills or ability to do things themselves, often leading to less choice and control in different areas of their own life.
Unwanted Attention
Individuals with IDD often report unwanted stares, teasing, and being avoided by others.
These stigmas can generate feelings of ‘not being good enough’, lowering self-esteem and selfconfidence in this population, and increasing their risk for anxiety and depressive disorders. Unfortunately, with limited research, funding, and community awareness, this leads to challenges for those with IDD to get mental health supports that meet their needs, often ending up on waitlists for support.
Bethesda Community Services recognizes this need for providing mental health support when they need it, and has began offering Rapid Mental Health Supports to those showing signs of increased risk to mental health concerns once they join a partnership with Bethesda. This may include, but is not limited to those with recent hospitalizations due to mental illness, increases in self-harming or suicidal thoughts and behaviours, or a recent challenging life event.
This program supports individuals’ shortly after partnership, offering 1-3 sessions providing counselling and advice, coping strategies, and/or community resources to help lower risk for mental health concerns while they are awaiting additional supports. n
“This program was helpful because I got help faster than the last time I asked for help, to navigate my feelings and emotions around a tough situation that I am currently dealing with.”
- a Rapid Mental Health participant
Werner, S., Corrigan, P., Ditchman, N. & Sokol, K. (2012). Stigma and intellectual disability: A review of related measures and future directions. Research in Developmental Disabilities, 33(2), 748-765.
Leeb, R. T., Kaminski, J. W., Bitsko, R. H., Armour, B. & Merrick, M. T. (2016). The association between childhood disability and child maltreatment: A systematic review of the literature. In J. R. Lutzker, K. Guastaferro & M. L. Benka-Coker (Eds.), Maltreatment of people with intellectual and developmental disabilities (pp.11-82). American Associated on Intellectual and Developmental Disabilities. https://openaccessibility.ca/financial-security-and-financial-abuse-prevention-among-persons-with-intellectual-and-developmental-disabilities/
Socio-Sexual Committee
The Socio-Sexual Committee is comprised of 10 clinicians, from a variety of disciplines, working within Adult Clinical Services. The purpose of this committee is to enhance knowledge and capacity to better support individuals with intellectual and developmental disabilities in areas related to sexual health, wellbeing, empowerment and safety.
Some of the recent trainings or certificates completed by members of this committee include:
• Certification in Sexual Offending Treatment
• Sexual Behaviour Analysis course
• Holistic Sex Therapist track (ISEE).
• ISEE Sex Educator training
• SSKAAT-R (Socio Sexual Knowledge and Attitudes Test - revised) Training
• Elevatus training
To build community capacity, a socio-sexual themed conference will be held in March 2025, in Hamilton. Nicholas A. Maio-Aether, MAMFT, MSPSY, LBA, CSC, IBA, BCBA (he/ they), the owner of Empowered: A Center for Sexuality, will be the key note speaker. The conference will focus on topics such as sexual education, human trafficking, consent and the law, internet and smart phone safety and inclusion, just to name a few.
Click this button for more information about how to register for this upcoming conference. n
Sexual Health and Wellbeing for All conference
Applied Behaviour Analysis (ABA) Regulation in Ontario
On July 1, 2024, Applied Behaviour Analysis (ABA) became regulated in Ontario under the oversight of the College of Psychologists and Behaviour Analysts of Ontario (formerly, the College of Psychologists of Ontario). The decision to regulate ABA marks an important step toward ensuring higher standards in behaviour-therapy services. This regulation means that Behaviour Analysts providing ABA services must meet specific qualifications and adhere to specific
training, practice, and ethical standards. Regulating ABA also helps to distinguish qualified practitioners, thus fostering public trust and providing individuals and families with greater confidence in the quality of services provided. Bethesda is home to many Registered Behaviour Analysts who deliver high quality, evidence-based ABA services to individuals and families. n
For more information about the regulation of Behaviour Analysts, you can visit: CPBAO Public – Regulating Psychology and Applied Behaviour Analysis in Ontario
Bereavement Supports
What is Bereavement Supports?
Bereavement is defined as “the state or fact of being bereaved or deprived of something or someone” (Merriam-Webster Dictionary https://www.merriamwebster.com/dictionary/bereavement). We recognize that loss can happen in a variety of ways – through the death of a loved one or pet, the loss of a relationship, job or a home, to name just a few. A person can experience grief and all of the associated emotional, cognitive and behavioural responses for any loss, not simply a loss experienced through the death of an important person.
Bereavement Supports is the coming alongside of someone who has experienced grief and loss to help bring clarity to their experience and develop coping strategies to deal with all of the thoughts, feelings and emotions that can result from a loss. When Bereavement Supports are provided to a person, we spend time talking about the loss the person has experienced and their grief journey. We help to lay a foundation of understanding in terms of what is involved in a person’s grief journey, including understanding and accepting the thoughts, feelings and emotions that a person’s grief may bring and develop strategies to help cope with grief triggers in a healthy way. We strive to foster a sense of hope and resiliency for the person, reminding them of the support system that exists for them or how to seek ways to build up a support system. Ultimately, we strive to provide a safe space for a person to talk about their loss, validate their experiences with grief and learn strategies to better cope with their grief and loss.
Mike Gilmore, Chaplain, and Melissa Gibson, Bereavement Support Coordinator, provide Bereavement Supports. We are able to provide Bereavement Supports to adults (18 years of age or older) with Intellectual and Developmental Disabilities living in Niagara, Hamilton, Haldimand-Norfolk and Brant. Primarily, sessions are provided virtually but inperson sessions can be available in the Niagara and Hamilton regions.
What Happens in Bereavement Support Sessions?
Typically, we will spend time talking with the person about their loss, whether this loss has been through the death of a loved one or in other losses as mentioned above. But we also spend time talking about the loved one and what they were like when they were alive. We may use a variety of tools to help the person process their loss, such as creating a memory book, using visuals and social narratives, sharing precious memories and
pictures of their loved one, as well as any special items they may have that remind them of their loved one. We have also been privileged to have people share “goodbye” letters they have written to their loved one or how they have used art as a way to express their grief.
What are the Partnership Options Available from Bereavement Supports?
For the individual, 1:1 Bereavement sessions provide support and education about the stages and thoughts/feelings/emotions of grief, faith and health practices to support healthy grieving and mourning. There is also the option of 1:1 “Let’s Talk” sessions that provide education around changes leading up to a person’s death, as well as the role of hospitals, hospice, aging parents and life changes.
How to Access Bereavement Supports?
We also provide Bereavement Education for staff and caregivers, either through a Bereavement Workshop (how to support a grieving person, what to say, how much to say, important dates to remember and grief triggers, etc.) or Team Support Sessions (support for teams providing palliative care and/or support to people who nearing end of life; education around understanding ambiguous loss, unattended grief, compassion fatigue, disenfranchised grief and team talk).
People are encouraged to complete the referral form found on the Bethesda website: and then return the completed form either by email to ClinicalServicesAdmin@bethesdaservices.com or by fax to 905.685.6093. Referrals are processed as received and generally, the waitlist goes by date referred. n
Bereavement Referral Form
“Let us deliberately and courageously reach out to those we love who have experienced loss and who are in pain. We have the power to make a difference for the better in others’ lives through our words, actions, and – most importantly – our presence. When we share with others in their loss, we bring healing and comfort to a place inhabited by hurt and pain. Let us humbly and gently share with one another in the process of grieving so that their hurt may be diminished and healing can occur.”
Op-Ed: After Death, Grief Shared Is Grief Diminished by Michael LuBrant, PhD April 8, 2021. Michael LuBrant, PhD, directs the Program of Mortuary Science at the University of Minnesota Medical School.
Psychological Assessments for eligibility in accessing Developmental Services
Within the province of Ontario, anyone over the age of 18 who are seeking developmental services funded by the Ministry of Children, Community and Social Services must apply through Developmental Services Ontario. Through this application process, you will need to have proof that you have a developmental disability, live in Ontario and are over the age of 18.
For individuals who do not have the documented evidence of a diagnosis of a developmental disability, Bethesda Adult Clinical Services is here to help. Our Psychology Department plays a significant role in supporting the individual through this process by completing a psychological assessment to help determine if the individual has a developmental disability. A psychological assessment is a comprehensive evaluation of a person’s cognitive functioning which includes their strengths, weaknesses, and adaptive behaviour. Our person–centered assessments are completed by Psychometrists supervised by a registered Psychologist and will often include recommendations and strategies based on the individuals assessment results.
Over the past few years, we have seen a steady incline in the number of referrals for individuals seeking eligibility assessments for developmental services, creating extensive wait times. In an attempt to assist with these pressures and to be responsive to people in urgent need, we are grateful to Bethesda Foundation. They provided a grant to Bethesda Adult Clinical Services to support an additional 20-30 people in accessing a Psychological Assessment throughout this fiscal year. n
I am very grateful for this assessment because your findings, your words, do describe my son, with respect and kindness.
They offer hope for my son’s future. Hope for less suffering in so many ways. It will be fantastic to see my son access the resources he is entitled to through the Developmental Services Ontario. My hope is that he is able to be acquainted with truly caring and trained staff to work with him.
May he have wonderful
new
experiences and success so that he can treasure those positive memories.
It’s that I am so impressed with your polite calm manner with my son and myself. Your empathy is evident and that helped my son to be relaxed with you, drawing out his best self as much as was possible.
Thank you so much.
- Mrs. Long
Parenting Neurodivergent Children The Power of Love, Resilience, and Collective Support
Parenting any child is a challenging job on its own. When you add in the complexities of a neurodevelopmental disability, it becomes a journey that is uniquely challenging and uniquely rewarding. This new path requires us to become extraordinarily resilient, tireless learners, with an endless supply of patience and love.
When I became a parent, I had a crystal-clear vision – like a freshly cleaned window – in my mind about what kind of parent I wanted to be and what dreams I envisioned for my child. My role as Mom was spotless and pristine, and I was ready for anything—or so I thought.
Now I am a mom to two children, and that crystal-clear window has morphed and changed. It now resembles a beautifully warped, multi-coloured stained-glass window, with multiple panes and strong wrought iron weaved throughout. While it’s nothing like I planned, I am still a beautiful parent to my kids – just not so spotless.
My oldest son, Jack, is a spirited 13-year-old with ADHD. He is bright and funny and sensitive, and also impulsive and confrontational. My youngest son, Troy—affectionately nicknamed “Troynado”—is 8. He has nonverbal autism. He is affectionate, curious, and creative, and also tenacious and unpredictable.
I know what my parenting journey has looked like so far, and I believe we likely have a lot in common. I know the countless hours spent learning about the diagnosis, reviewing research, reading the stories of other families, and doing it all on little sleep.
We find ourselves navigating uncharted territory, deciphering the world through the lens of neurodiversity. In this shared experience, I have witnessed the unwavering love that binds our families together. It is a love that keeps us moving forward. It is also a love that makes us reach out and ask for help.
“I need help” is one of the hardest sentences to say. I personally enjoy being right—just ask my husband, he’ll confirm—and I don’t like asking for help. By asking for help, I’m admitting vulnerability. I’m acknowledging that maybe I don’t know everything.
Yet, I recognize the immense strength and bravery in embracing that vulnerability by asking for help with our own children. By seeking support, we’re not just advocating for our children; we’re building a network of care and understanding. It is within that network that we foster a community for our children to thrive and shine. The staff at Bethesda, myself included, love being a part of that network. Thank you for looking to us for
guidance and support. We are happy—and eager!—to shoulder some of the work. This journey is not meant to be a solo endeavor. We’re not just professionals doing a job; we’re partners in this journey. It is not just in the job description—it’s our passion.
I’ll let you in on a little secret: if there’s one thing I’ve learned from my years in this field, it’s that caregivers are the true trailblazers. Your insights, stories, and needs shape how we work. From new workshops to advocacy initiatives, your voices guide us forward.
And let’s not underestimate the power of collective action— whether it’s changing government policies or rallying to defend disability services, caregivers lead the way.
“Our children deserve to be active members of their communities, and you are making it happen.”
It’s easy as a parent to feel like we’d be lost without service and support (and maybe that’s a little true), but we service providers would also be lost without caregivers. As professionals, we rely on you to share the intricate details of your child’s world for us to be successful in supporting them. Who else but a parent knows that “I want Harry Potter bear video” really means “Paddington Bear movie”?
As a fellow parent of a child with autism, I share the triumphs and tribulations you experience. I witness the strength in your smiles during the highs and the courage in your tears during the lows. Your dedication to understanding your child’s individual needs is truly commendable.
I’ve seen firsthand the extraordinary power that exists within our children. For the first time ever, Troy recently
dressed himself head to toe independently, and nothing was backwards or inside out. He also demonstrated some understanding of quantity via his AAC device by requesting, “I want TEN cookies” instead of the usual “I want cookies” because 10 is the highest number on his numbers page and he loves cookies.
These milestones may seem small to others, but to us, they are monumental. Parenting a neurodivergent child can feel isolating. The world often doesn’t see the daily efforts, the sleepless nights, the endless appointments, and the countless sacrifices made to ensure your child has the support they need.
But here at Bethesda, we see you. And we, parents, see each other. I see you practicing the same step of your child’s programming over and over and over. I see the emails you send timestamped after midnight. I see everything you pour into your child.
And while it may not seem like it—especially on those extra *spicy* days—your child sees you too. You are where they get their extraordinary power from. They are empowered through you. It is your commitment that is not only changing their world but also making an indelible mark on the broader community, fostering awareness and acceptance.
Our children deserve to be active members of their communities, and you are making it happen. You are a beacon of hope for others navigating similar paths.
Together, parents and professionals are rewriting the narrative around neurodiversity. We’re emphasizing abilities over limitations and showing the world what our children can achieve. Every step we take together is paving the way for a society that embraces neurodiversity. Our collective strength is a powerful force for change.
Thank you for being warriors of love, advocates of understanding, and champions of acceptance. Our journey may be challenging, but together, we are creating a brighter future for our extraordinary children.
Be sure to regularly take a moment to celebrate all the milestones and show yourself some well-deserved kindness. Treat yourself! And when the journey feels heavy, don’t hesitate to reach out.
Asking for help is one of the greatest gifts you can give service providers, because you’re inviting them to be part of your network. n
Did You Know?
Bethesda is in Hamilton
Bethesda is funded by the Ministry of Children, Community and Social Services to provide clinical services for adults living with a developmental disability throughout the communities of Brant, Haldimand/Norfolk, Hamilton and Niagara. Although we do travel to these communities for appointments Bethesda also operates a satellite office in Hamilton.
You can find us at
550 Fennell Ave E, Unit 16A.
Over the past year, we have had the opportunity to host in-person events and clinical groups at this location. We recognize the importance of connecting and providing opportunities for individuals to meet face to face with others and their clinician.
We have recently started to host Connection Corner, a drop-in event for past and present individuals and their caregivers can come and connect with previous/ current clinician and meet others who have been a part of Adult Clinical Services. If you have interest in attending one of these events, please contact us to be added to the mailing list: ClinicalServicesAdmin@bethesdaservices.com
Trauma Informed Care
Implementation Plan Update
As an organization, we are dedicated to transforming Bethesda into a TraumaInformed organization. This transformation involves recognizing the profound impact of trauma, understanding its effects, and purposefully integrating this knowledge into all aspects of our work. Our goal is to create a safe, supportive environment for our clients, their families, and our staff. This initiative directly aligns with our strategic priorities and underscores our commitment to supporting individuals in achieving their best quality of life.
To advance this commitment, we are launching Trauma-Informed Care 101 training for every Bethesda staff member. This training covers the fundamentals of trauma, its impact, and ways to foster a trauma-informed culture grounded in values such as Safety, Trustworthiness, Collaboration, Choice, and Empowerment. Staff will also explore the importance of self-care and its role in enhancing quality of care while also building resiliency. Our goal is to achieve a fully trained workforce in TraumaInformed Care by March 31, 2025.
Beyond training, our implementation plan includes a comprehensive review of our policies and procedures to ensure TraumaInformed Care principles are embedded in all practices at Bethesda. We will conduct Trauma-Informed Environmental Assessments to confirm that our physical locations offer both physical and psychological safety. Additionally, we will refine our hiring, orientation, and other human resources practices to align with trauma-informed principles, fostering a supportive experience from day one.
Bethesda’s mission is to inspire, encourage, and empower children, youth, and adults with intellectual and/or developmental disabilities, as well as their families, to live their best lives. Becoming a TraumaInformed organization strengthens our capacity to fulfill this mission, ensuring that our approach is compassionate, supportive, and resilient.
Consultation Services Community Trainings:
Trauma-Informed Care 101
This training equips participants with foundational knowledge of trauma and its effects on the brain and nervous system. Learners will develop a new perspective on understanding behaviors that may have previously been labeled as non-compliance, manipulation, or attention-seeking.
The training emphasizes a shift from asking, “What is wrong with the person?” to “What happened to the person?”—transforming how we view and engage with individuals who have experienced trauma. Participants will gain an in-depth understanding of the core Principles and Values of Trauma-Informed Care and will leave with a toolkit of evidence-based strategies to effectively apply trauma-informed practices in their daily interactions with clients, colleagues, and in caring for their own well-being.
Supporting the Mental Health Needs of Our Direct Care Professionals
This 3-6 hour training delves into the impact of human services work on the professionals delivering these essential services. Participants will gain a comprehensive understanding of the signs and symptoms associated with Compassion Fatigue, Burnout, Vicarious Trauma, and Secondary Stress Responses. Additionally, learners will develop effective strategies to prevent or mitigate the impact of these challenges by creating a Wellness Kit filled with practical resources and strategies tailored to enhance their well-being.
Training Follow Up
Consultations are available to follow up with individuals or teams after Trauma-Informed Care (TIC) training. These consultations can include tailored TIC recommendations for specific cases or situations, additional “booster sessions” that delve deeper into key concepts covered in the initial TIC training, or other specialized requests based on the needs of the participants.
Organizational Change Consultation
We provide consultation services for organizations seeking to become Trauma-Informed. Our team will collaborate with you to create a customized implementation plan tailored to your organization’s unique needs. This may include Trauma-Informed Organizational Assessments, staff training, policy and procedure reviews, and enhancements to hiring and orientation practices, along with a range of other specialized consultation services.
Partnership with Institute on Trauma and TraumaInformed Care (ITTIC) at the University at Buffalo’s School of Social Work
As part of our Trauma-Informed Care initiative, Bethesda has partnered with the Institute on Trauma and Trauma-Informed Care (ITTIC) at the University at Buffalo’s School of Social Work. ITTIC specializes in helping organizations understand the impact of trauma and adapt service systems to avoid retraumatizing vulnerable populations. Bethesda’s Trauma-Informed Care Implementation Project is guided by ITTIC’s 2019 Trauma-Informed Organizational Manual, a comprehensive resource for embedding Trauma-Informed practices across our organization.
This partnership grants Bethesda access to ITTIC’s extensive expertise in Trauma-Informed care research and practice. Their team provides evidence-based insights and best practices, directly supporting Bethesda’s transformation into a Trauma-Informed organization. Through direct consultation, ITTIC is equipping us with specific guidance, practical tools, and effective, real-world strategies applicable to our work with clients, families, and staff.
With ITTIC’s support, Bethesda is also enhancing strategies for staff wellness, helping to mitigate burnout and reduce secondary traumatic stress. These efforts aim to improve staff retention and satisfaction as our employees feel more supported and valued in their roles. Ultimately, the greatest benefit of this partnership is the expert guidance ITTIC provides in creating a safer, more supportive environment for clients, resulting in improved outcomes and a more compassionate, Trauma-Informed experience for those we serve.
Indiana University Partnership
Trauma-Informed Research Initiative
In June 2024, Bethesda formed a strategic partnership with Indiana University, co-led by Dr. John M. Keesler, an Associate Professor and recognized authority in trauma and developmental disabilities. This collaborative research initiative aims to deepen our commitment to adopting Trauma-Informed Care practices. Key components of the project include the development of a qualitative survey and interview guide to capture client experiences with TraumaInformed Care, along with the creation and validation of a streamlined quantitative assessment tool to measure these experiences effectively.
In partnership with individuals with lived experience, we will also produce an evidence-based practical guide designed to assist organizations supporting people
John M. Keesler, PhD, LMSW is an assistant professor in the School of Social Work at Indiana University Bloomington. He is originally from Buffalo, NY, and currently resides in Southern Indiana. He has more than 10 years practice experience in intellectual/developmental disabilities, with an emphasis on behavioral health. Dr. Keesler conducts community-based research focusing on adversity/trauma, trauma-informed care, and quality of life, with an emphasis on these substantive areas in intellectual/developmental disability service organizations.
with intellectual and developmental disabilities in implementing Trauma-Informed Care practices.
In September 2024, we began this work consulting directly with people with lived experience who are playing a vital and essential role in our project. Ashlee is one of our consultants. Ashlee is a self advocate and a paid research assistant at Brock University. She loves to read and make bracelets and she shares with us that she could go to Starbucks every day if she could. Ashlee has also earned her yellow belt in Para-Karate. When asked about her future goals, she shared, “I would love to have my own house in Niagara-on-the-Lake with the staff that I choose, not whatever the government gives me. I’d even be happy to live in a group home where I could help the staff with laundry and serve supper.”
“I am enjoying being apart of the
Trauma-
Informed Care, as a consultant, it is about time this sort of thing is
happening,
there are some that they help
out for the honourium, and well that’s a great bonus. I want to change the world, for people with disabilities, especially those with IDD and other complex things like me, as we are super marginalized, and sometimes over looked.”
-Ashlee
Community Partner Spotlight NIAGARA SUPPORT SERVICES
In a great example of community partnership, Bethesda’s Behaviour Support Services continues to provide collaborative service with Niagara Support Services (NSS). Through this arrangement, Bethesda’s Behaviour Consultants and Registered Behaviour Analyst provide consultation to NSS based on the needs of the agency. The collaboration welcomes Alison Hodgkins who joined this partnership in the summer. Alison is providing supports to one of NSS’s supported living homes where six people reside.
In collaboration with the NSS team, Alison is revising Behaviour Support Plans (BSP) to ensure each person has a plan that best reflects their needs. Devon Koekoek is now responsible for providing behaviour consultation to NSS’s Mowat program.
Additionally, Devon continues to support the Barker Enhanced Supportive Living Program. As part of this working relationship, Behaviour Support Services has been able to provide consultation, develop and revise Behaviour Support Plans, as well as provide additional trainings for NSS staff. Devon and Alison look forward to their continued involvement in this partnership, with the goal of providing quality service to the individuals supported by NSS, their staff, and the agency as a whole.
Foundation
There are many ways you can contribute to Bethesda and support those we serve. From one-time donations, to monthly giving, legacy gifts, and community partnerships, there are countless ways you can make a difference in someone’s life today.
Ways to Donate
To discuss the options available or to get your questions answered, call 905.684.6918 ext. 378 or email merb@bethesdaservices.com.
The Bethesda Foundation, a registered charity in Ontario, Canada, reflects the Board of Directors’ passion for supporting children, youth, and adults with intellectual and/or developmental disabilities. The Foundation raises funds to fulfill the community’s unmet needs and promotes the programs developed by Bethesda.
Bethesda has operated as a charitable organization since 1937. We greatly appreciate the contributions of our many supporters, without whom we could not carry out our mission.
