Bert's Big Adventure Magazine - 2018

2018 ISSUE

bertsbigadventure.org

BERT'S BIG ADVENTURE iz ne Magical Moments...

VIP Kids

“DIFFERENT IS BEAUTIFUL” A STORY OF TRANSFORMATION PG. 21

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_C=55. M=100, Y=0, K=15 • if used as spot color, match to pantone 2070U or pantone 259C

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_C=0, M=29, Y=72, K=0 • if used as spot color, match to pantone 1225U or pantone 1365C

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_reversed out version

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CHILD HEROES In-Depth Stories of the

2018 KIDS

BERT WEISS OF

_greyscale version

THE

BERT

SHOW

DISCUSSES 16 YEARS OF BIG ADVENTURES PG. 3

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stablished in 2002, Bert’s Big Adventure is a 501(c)(3) nonprofit organization that provides a magical, allexpenses-paid, five-day journey to Walt Disney World® for children with chronic and terminal illnesses and their families. To qualify for Bert’s Big Adventure, children must be between the ages of 5 and 12, live in The Bert Show radio listening area, prove financial need and have never been to Walt Disney World.

Following the annual trip, Bert’s Big Adventure provides year-round support through initiatives such as the Reunion Adventures, the Fairy Godparent volunteer program and additional charitable services. The trip and programs create a community of families that establish lasting friendships with others facing similar challenges.

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CONTENTS

23 Courtney 27 Vincent

Joelton, TN

Ft. Wayne, IN

OUR STAR STEWARDS

31 Braxton 35 Khairi

Hapeville, GA

Carrollton, GA

Jersey Mike’s Subs................................................7 Dentistry for Children & Family Orthodontics..............................................8 Endeavor Air......................................................11 Moe’s Southwest Grill ..................................25 Audi Atlanta .....................................................26

OUR MAGIC MAKERS

39 Zy 43

Luis

Marietta, GA

Powder Springs, GA

47 Shalaijah 51 Link

Winder, GA

Renaissance Concourse Atlanta Airport Hotel ...................................12 Carter’s Charitable Foundation.......................29 Avalon in Alpharetta......................................30 Troika Studio ....................................................41 Atlanta Santa Speedo Run.........................41 Atlanta Moon Ride..........................................42

Austell, GA

55 Kennedy 57 Carsyn

Gainesville, GA

F E AT U R E S :

Countdown to Bert’s Big Adventure......... 5 Wednesday’s Welcome.................................... 6 Thursday Send-Off Celebration................... 9 First Night in Disney...................................... 13 Magical Friday................................................... 15 Safari Saturday................................................ 17 Aloha Monday................................................... 19 Sponsor Thank You........................................ 37 Fairy Godparents............................................. 49 Big Reveals........................................................ 53 Reunion Adventures...................................... 65 Scrapbook.......................................................... 76

SPOTLIGHTS:

McDonough, GA

59 LJ 61

Ashlynn Lawrenceville, GA

Newnan, GA

63 Mickey 13

Nevaeh

Different is Beautiful: A Story of Transformation.......................... 21 Davi’s First Trip Perspective....................... 33

Acworth, GA

Orlando, FL

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Dear Friends of Bert’s Big Adventure, You'd think after hosting Bert's Big Adventure ALL these years that the trip would be sort of routine, right?

WRONG. Every year, each family makes the journey so unique. Watching a new group of 5-year-old girls as they see Cinderella’s castle for the first time is always unique.

I assure you, seeing our Bert’s Big Adventure girls look at themselves for the first time as they are revealed in the mirror as a princess at Bibbidi Bobbidi Boutique is always unique. Watching our kids immediately and unconditionally accept each other never gets old.

And this uniqueness is only possible because you have been generous enough to supply us with the gifts we need

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for our trip, our Family Reunion Adventures, and our Fairy Godparent volunteer program.

I hope that our magazine brings the trip alive for you and connects you to the kids that are part of our Bert's Big Adventure family.

Thank you so much for making Bert's Big Adventure a real difference in our lives.

Bert Weiss, Founder

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BERT'S BIG ADVENTURE zine Magical Moments...

VIP Kids

Maga

Publisher/Editor-in-Chief David Crawford Graphic Designer Troika Studio / Anne Nava Photographers DASH Photography / Amanda Coker dashphotography.com Sarah Esther Photography Sarahesther.com Monarch Studio / Zach Thomas Themonarchstudio.com Cassandra Young Photography Cassandra-young.com

THIS SMILE

MADE POSSIBLE BY

YOU!

Diagnosed with CLOVES syndrome—a rare and incurable disorder—Ashlynn has a five-pound tumor in her abdomen.

She’ll never forget becoming an official princess during Bert’s Big Adventure’s annual trip to Walt Disney World. And she’ll remember that gifts from you made it possible.

Contributers Shar-Lisa Andrews / Writer Michael Birchall- Creative Director / Troika Studio _C=55. M=100, Y=0, K=15 • if used as spot color, match to pantone 2070U or pantone 259C Molly Darby- Executive Director / Bert’s Big Adventure _C=69, M=7, Y=0, K=0 • if used as spot color, match to pantone 2985U or pantoneDigital 298C Seth FerreiraDirector / Troika Studio Bobby Kelly- Director of Development / Bert’s Big Adventure _C=0, M=29, Y=72, K=0 • if used as spot color, match to pantone 1225U or pantone 1365C Sheridan Smith- Volunteer Manager / Bert’s Big Adventure Bert Weiss- Founder and President / Bert’s Big Adventure _C=0, M=91, Y=100, K=23 • if used as spot color, match to pantone 200U or pantone 1805C Cassie Young / The Bert Show _C=0, M=0, Y=95, K=0 • if used as spot color, match to pantone 102U or pantone 102C

_reversed out version

_R=120, G=29, B=126 • HEX#781D7E

_R=19, G=181, B= 234 • HEX#13B5EA

_R=253, G=188, B=95 • HEX#FDBCSF

Bert’s Big Adventure, Inc. PO Box 420917, Atlanta, GA 30342 • 678.929.8474 BertsBigAdventure.org

_R=191, G=49, B=26 • HEX#BF311A

_R=255, G=242, B=3 • HEX#FFF203

_greyscale version

All printing and distribution of Bert's Big Adventure Magazine is donated by:

Tucker Castleberry 3500 McCall Pl, Atlanta, GA 30340 • 770.454.1580 www.tuckercastleberry.com

Make a gift. Make a difference.

BERTSBIGADVENTURE.ORG/DONATE

Countdown To

Bert’s Big Adventure Surprising families who have been selected to go on Bert’s Big Adventure’s annual trip to Walt Disney World is a perfect way to celebrate the holidays. Whether it’s an invitation to “review the application” at the Buckhead Club or even a phone call from Bert himself, the fun begins months before the magical, five-day journey. All of the families get together for a pre-trip orientation at the Children’s Museum of Atlanta to meet, greet, eat dinner and ask questions. Every new VIP receives their very own golden key to Walt Disney World as well as a Bert’s Big Adventure countdown clock, which counts the days, hours, minutes and seconds until Bert’s Big Adventure boards the Endeavor Air flight to Disney!

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Wednesday’s

Welcome When the countdown clocks finally hit zero on Wednesday before the trip, it’s time to get the party started! The Bert’s Big Adventure VIPs and their families enjoy private limousines from Cooper Global chauffeuring them to a red-carpet arrival at the Renaissance Concourse Atlanta Airport Hotel.

The Jonesboro High School Drumline, Jersey Mike’s Subs, Haagen-Dazs Ice Cream, Dentistry for Children’s Luna the Tooth Fairy, free mattresses from Mattress Firm, free carpet-cleaning from Eco Tech Services and a dance party by DJ Scott Moody all set the tone for a week full of fun surprises with new friends. The Kaleidoscope Project passed out personalized tutus and superhero capes to all, while Ears of Magic by Brooke gave each Bert’s Big Adventure kiddo a custom set of Mickey ears!

Wednesday’s Welcome Party gives everybody quality time with each other before all the magical moments together in Walt Disney World. bertsbigadventure.org • bert's big adventure magazine 2018

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JERSEY MIKE’S SUBS

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hat a day! Wednesday, March 28, 2018, turned out to be nothing short of magical. Through the incredible efforts of the wonderful group of Jersey Mike’s franchisees and their staff, Jersey Mike’s Subs raised $165,000 during their annual Day of Giving.

Yes, our jaws dropped, too! It was a day to remember as Bert and Kristin traveled the Atlanta region to visit 37 of the 42 participating locations with thousands of Bert Show fans meeting them and

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following along.

Jersey Mike’s has long fostered a culture of giving unconditionally to the community. Every March, Jersey Mike’s annual Month of Giving campaign raises millions of dollars for deserving charities nationwide.

Bert’s Big Adventure continues to be a proud beneficiary of the Jersey Mike’s Subs culture of making a positive, direct impact in the community. Thank you, Jersey Mike’s!

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DENTISTRY FOR CHILDREN & FAMILY ORTHODONTICS

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ooth Fairies around the world provide a little magic and cool presents for children while they sleep. Bert’s Big Adventure children are incredibly fortunate to have an up-close and personal relationship with the most wonderful Tooth Fairy of them all, Luna the Tooth Fairy from Dentistry for Children and Family Orthodontics. Partners for more than five years, Dentistry for Children and Family Orthodontics and its more than 27 Atlantaarea offices and 11 Charleston-area offices have donated more than $325,000 through their Project Smile campaign. The Project Smile campaign creates magic whenever a child loses their orthodontic retainer. Don’t be mad at us, but we love it when kids lose their retainers. When parents go to Family Orthodontics to have the retainer replaced, the cost of that retainer is donated to

Bert’s Big Adventure. Now that’s magic!

In addition to these Project Smile funds, Family Orthodontics donates one set of braces to each incoming Bert’s Big Adventure family. And only to outdo themselves, Dentistry for Children and Family Orthodontics host and cover the cost of one of our four Family Reunion Adventures. The 2017 Fall Family Reunion Adventure was held at Dave & Buster’s and was a huge hit for more than 450 family members. Senior Director of Marketing Allison Howard said, “The doctors and staff at Dentistry for Children and Family Orthodontics are proud and honored to partner with Bert’s Big Adventure. Our missions are perfectly aligned: Bert’s Big Adventure seeks to put smiles on all of these special kids’ faces, and we work to make those smiles healthy and beautiful! What a perfect match!”

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Thursday

Send-Off Celebration

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n February 22nd, the Bert’s Big Adventure crew embarked on its 16th annual trip to Walt Disney World! The Bert’s Big Adventure VIPs and their families woke up Thursday morning in hotel suites courtesy of the Renaissance Concourse Atlanta Airport Hotel.

The families began their day in a ballroom transformed into a magical wonderland filled with amazing decorations, a huge breakfast buffet, super heroes and princesses, fun activities, AND they joined a live broadcast of The Bert Show! Audi Atlanta, Moe’s Southwest Grill, Carter’s Charitable Foundation, Dentistry for Children, Family Orthodontics, Dunkin’ Donuts, Q100, along with other sponsors kept their morning filled with surprises throughout the live broadcast. For a little pampering before their departure, massages by Victoria Kramer, and hair styling and makeup by Jyl Craven Hair Design were a special treat.

Characters and Fairy Godparents escorted the families in Cooper Global limousine buses to the ExpressJet hangar for a red carpet celebration prior to boarding the chartered flight provided by Endeavor Air. Sponsors, partners and volunteers all come to help send off these very deserving families about to embark on a once-in-a-lifetime trip to Walt Disney World! A special thank you to Simple Details and Balloonacy for always making the ballroom look beautiful, and to Cindy Powers for organizing the character volunteers!

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ENDEAVOR AIR

by Shar-Lisa Andrews ith blue skies and smiles gleaming as bright as the sun, the day of departure was more than anyone could’ve imagined.

Endeavor Air was responsible for the infectious smiles embedded on the faces of Bert’s Big Adventure’s VIP kids and their family members on this year’s departure day to Walt Disney World.

Within the private hanger, a host of welcoming, uniformed aviation professionals, characters, and a red carpet awaited the Bert’s Big Adventure’s families as they boarded the private jet provided by Endeavor Air. The euphoria of travel and great anticipation openly lingered throughout the hearts and minds of everyone present.

Bert’s Big Adventure announced its new partnership with Endeavor

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earlier in the year. The Minneapolis-based regional airline, a whollyowned subsidiary of Delta Air Lines, proved to be more than a preferred aviation travel service. The company quickly flourished into a solid sponsor, an avid supporter, and a dynamic partnership. Together, the duo has taken enormous strides in creating magical moments for not only the kids and families of Bert’s Big Adventure but for Endeavor Air’s personnel as well. “It’s such a great feeling to make a difference and touch the lives of many! It’s a great joy for our team here at Endeavor Air to be a part of such a positive experience for these deserving kids and their families,” said Dave Sniadak, Manager of Corporate Communications at Endeavor Air. Thank you, Endeavor Air!

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magazine 2018

RENAISSANCE CONCOURSE ATLANTA AIRPORT HOTEL

by Shar-Lisa Andrews he Renaissance Concourse Atlanta Airport Hotel knows how to roll out the red carpet for Bert’s Big Adventure’s VIP kids and their families. Adjacent to Hartsfield-Jackson Atlanta International Airport, the Renaissance and its eye-catching view overlooking one of the airport’s runways was a prime location to host the kick-off for 2018’s fun-filled Bert’s Big Adventure trip to Walt Disney World. The hotel welcomed its special guests with the Wednesday Welcome event, an overnight stay in its luxury accommodations and a Thursday Send-Off Party.

The lobby and an event space were transformed into a redcarpet affair for the Welcome Wednesday event, which included a live band and a host of Bert’s Big Adventure staff members and

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volunteers dressed in signature green t-shirts greeting the families.

That evening, the families each enjoyed one of its 387 sound-proof rooms within the 11-story atrium. On Thursday, the Send-Off Party featured a host of princesses, super heroes, storm troopers, and other favorite storybook characters with an incredible breakfast provided by the hotel!

“This is the BEST thing we do! Everyone looks forward to it and is honored to be a part of Bert’s Big Adventure!” says Event Manager Marisa Matthew.

The Renaissance offered exemplary hospitality for the families of Bert’s Big Adventure, making their brief stay a part of the magical experience.

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First Night

IN DISNEY

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L O H A! Disney’s Polynesian Village Resort greets the Bert’s Big Adventure 'ohana—a Hawaiian word meaning family—to this tropical paradise with a traditional torch lighting welcome ceremony complete with fire dancers and drums. Mickey and Minnie crash the private dinner at Epcot’s Norway Loft and take

pictures with anybody who wants them! Guides then escort the group to a VIP waterfront patio in the United Kingdom for dessert and fireworks. Everyone finishes off their first night globetrotting through Walt Disney World together with a ride on the Soarin’ Around the World flight motion simulator.

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Magical

FRIDAY

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ert’s Big Adventure kicks off Friday inside the Magic Kingdom with VIP access on Main Street, an exclusive view of Cinderella’s iconic castle, and a buffet breakfast with Mickey Mouse shaped waffles. Highlights in the park include the Bibbidi Bobbidi Boutique

for princess makeovers, The Pirate’s League for pirate makeovers, Space Mountain and souvenirs for everyone! The Bert’s Big Adventure families end their magical day together at the HoopDee-Doo Musical Revue for a fun-filled night of dinner theater.

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Safari

SATURDAY

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aturday starts bright and early with a trek to Disney’s Animal Kingdom for a ride on the legendary Kilimanjaro Safari. After a delicious group breakfast, Bert’s Big Adventure enjoys VIP seating at the Festival of the Lion King show. Families spend the rest of the afternoon with access to explore all the parks without waiting in

line for anything! Some choose to enjoy an immersive experience inside Pandora - The World of Avatar, while others seek thrills on the iconic rides at Hollywood Studios. Any which way, Saturday night brings everyone back together for dinner with a surprise Disney dance party! And for dessert? Fireworks, of course!

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Aloha

MONDAY

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ert always says that by Monday, the last day of our Disney journey, “It is hard to tell what kid goes with which family!

Everyone on Bert’s Big Adventure truly becomes one giant ‘ohana by the end of the trip!”

Part of Hawaiian culture, ‘ohana means family. Family means nobody gets left behind or forgotten.

Monday starts early at Disney’s ESPN Club with a live broadcast of The Bert Show. Tears flow as parents read personalized letters

to their children on the air. After lunch and a private, chartered flight home from Endeavor Air, the group enjoys one more surprise dance party in the ExpressJet hangar. Each kid gets a large bin filled with toys donated by Kristin from The Bert Show and her husband, Bart. As people say goodbye to each other, Bert reminds everyone that “goodbye” really means “until next time…” and invites them to join ALL past families at the quarterly Family Reunion Adventures!

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Spotlight

Different is

Beautiful

A STORY OF TRANFORMATION

by Lisa Walker, Bert's Big Adventure 2017 y name is Lisa Walker and last year, 2017, my family went on Bert’s Big Adventure’s annual trip to Walt Disney World. I’m honored to welcome all of the newcomers to this amazing family! You can stop worrying: Bert’s Big Adventure truly thinks of everything in their preparation. This is the one week you never thought was possible. Don’t even feel like you should clean the table—they got it. It’s in their hearts to do this for you. They spent the entire year planning this for you, and they are there to serve you wholeheartedly.

I’m sure by now you have enough information about this magical trip, but let me assure you that being in the Bert’s Big Adventure family is so much more. My child, Destiny, was born with severe craniofacial clefting. She was missing a lot of facial bone in her left eye. She encountered so much negativity from people because she looked different; She would clam up if someone approached her. When we were preparing for our Disney trip, I was also seeking counseling for her. To my surprise, I saw the introvert in Destiny begin to diminish at just our 2nd encounter with Bert’s Big Adventure during our trip orientation.

She played in the kitchen at the Children’s Museum of Atlanta, serving plastic waffles and fake coffee to total strangers. As I sat there in awe, she came around the corner on

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David’s back. Who was this child? Where did she come from? She was in public acting like she was at home. I then realized that she was at home. She accepted Bert’s Big Adventure as real family. So do I. I realized during the trip that I’d also become introverted by avoiding public crowds to protect Destiny. It wasn’t long before I was on the dance floor as well. I still get happy feet whenever I hear Justin Timberlake’s “Can’t Stop the Feeling.” Wear comfortable shoes because you will literally walk all day and dance all night.

Once Destiny returned to school, her teacher had already shown the class some YouTube videos of our trip. So now both Bert’s Big Adventure and her school treat her like a celebrity. Most importantly, Destiny treats herself like one and counseling is no longer a need. That alone has been more than magical to us.

This is so much more than a trip. There are four reunions a year where families from all past years get together. We met another family at a Family Reunion Adventure who had similar struggles getting a prosthetic eye. They referred us to the world’s best ocular plastic surgeon in Philadelphia. We would’ve never made this connection without our extended Bert’s Big Adventure family.

Many of us hear the word “different” often used as a descriptive word for our children, but it’s the perfect word for Bert’s Big Adventure. They are different because they are humanity in a society that often forgets that different is beautiful.

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AGE: 7

Vincent Blanchard,

Superhero

SYMPTOMS

HOMETOWN: Joelton, TN

DIAGNOSIS:

Dandy-Walker Syndrome

FAVORITE FOOD: Pizza

FAVORITE CHARACTER: Spider-Man

WHEN I GROW UP I WANT TO BE: A superhero

TRIP SOUVENIR:

“Where they see symptoms, we see our superhero. Having a child with special needs

All my new friends!

TRIP MEMORY:

Meeting Spider-Man and Mickey Mouse!

offers an abundance of opportunities to see grace.”

–Denisha, Vincent's mom

by David Crawford hen Bert’s Big Adventure VIP Vincent Blanchard turned 1 year old and still couldn’t sit up, a neurologist recommended infant therapy and gave him glasses. Unable to walk on his own by the age of 3, he began using a walker. Vincent remained mostly nonverbal, a fact that caused him constant anger and frustration over his inability to communicate his feelings. This became a bigger issue once Vincent was in preschool, which finally led doctors to order an MRI. They found that his cerebellum, the part of the brain that controls motor skills and muscles, wasn’t properly connected to his spine.

Doctors diagnosed Vincent with Dandy-Walker Syndrome, a rare form of cerebral palsy. Nobody knew he was 80 percent deaf—he didn’t hear for the first time until he was 4 years old. His parents said that while people constantly tell them how blessed Vincent is to have them, they feel the same way.

“People always tell us how lucky he is to have parents like us, but in all reality, we are the lucky ones. Where they see symptoms, we see our superhero. Having a child with special needs offers an abundance of opportunities to see grace.”

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MOE’S SOUTHWEST GRILL

by Shar-Lisa Andrews oe’s Southwest Grill is known for much more than its cheerful, “Welcome to Moe’s” greeting and its magical queso! The love, dedication, and passion the staff and franchisees have shown for the Bert’s Big Adventure kids are unparalleled. For more than six years, Moe’s Southwest Grill has been helping us create magical moments in the lives of well-deserved children and their families through its Moe’s Wednesdays campaign.

Every Wednesday in June, more than 70 Atlanta-area Moe’s

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locations donated 10 percent of their net sales in support of Bert’s Big Adventure. In June of 2018, Moe’s donated $85,000 to Bert’s Big Adventure. This donation will not only aid in funding the magical, all-expenses-paid, five-day journey to Walt Disney World for children with chronic and terminal illnesses and their families, but also provides support for year-round initiatives such as Family Reunion Adventures and the Fairy Godparent volunteer program. Throughout the partnership, Moe’s has donated more than $515,000. Thank you, Moe’s!

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AUDI ATLANTA

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nce again, Audi Atlanta proved to have Star Steward status with their generous donation of a 2018 Audi A5 Sportback to Bert’s Big Adventure to be raffled off to our community of passionate followers. For the fourth consecutive year, we soldout of 1,200 raffle tickets and chances to win this vehicle with an

MSRP of $44,475. This donation enabled Bert’s Big Adventure to raise a whopping $120,000. The Jim Ellis family and the Audi Atlanta employees are dedicated supporters of Bert’s Big Adventure. They will always be an important force behind the wonderful programs offered to our families!

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AGE: 9

Courtney Brower,

Junior SENATOR

HOMETOWN: Ft. Wayne, IN

DIAGNOSIS:

Juvenile Arthritis, Ehlers-Danlos Syndrome

FAVORITE COLOR: The rainbow

WHEN I GROW UP I WANT TO BE: A doctor

FIRST TIME:

Going on a vacation that doesn’t involve a doctor’s visit!

TRIP SOUVENIR:

“Courtney loves to tell her story on Capitol Hill and to be a voice for those who can’t be vocal.”

– Renda, Courtney’s mom

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All the pins of everything I conquered, like my first upside down roller coaster!

TRIP MEMORY:

Making a new best friend, Shalaijah, and hanging out with her the entire trip!

by David Crawford hen Courtney Brower used to wake up screaming and unable to walk, doctors first blamed “growing pains.”

They eventually diagnosed her at 5 years old with juvenile idiopathic arthritis as well as Ehlers-Danlos syndrome, both chronic illnesses affecting her joints and connective tissues.

Today, she still wakes up in pain, oftentimes using a heating pad or going directly into a hot bath to sooth morning stiffness.

Renda Brower, Courtney’s mom, said, “Over the past few years, Courtney received 178 shots and over 90 IV infusions. She never gave up hope or asked, ‘why me?’”

Rather than letting her challenges get in the way, Courtney learned that pairing her story with her love of public speaking could serve a larger purpose. She gave a speech at an Indiana State Senate hearing that led to legislation signed by future Vice President Mike Pence.

“Courtney loves to tell her story on Capitol Hill and to be a voice for those who can’t be vocal.

Her first experience with advocating introduced a bill that now helps families in our state with insurance disputes!”

Speaking in front of the Congress even led to an invitation to the White House, though her mom said she’s more interested in creating change.

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CARTER’S CHARITABLE FOUNDATION

by Shar-Lisa Andrews dorned with hula skirts and vibrant colored floral lei, the volunteers of Carter’s and OshKosh B’gosh showcased joyful smiles and upbeat personalities as they engaged with this year’s VIP kids and their families during the Bert’s Big Adventure send-off party. Every year, the dynamic duo creates a grandiose booth matching the theme of choice. This year, the trademarkthemed booth, inspired by Disney’s Moana, was nothing less than spectacular. Embellished with an island backdrop, animal cutouts, paper-tissue-textured tropical flowers, and a u-shaped boat was a grand gesture that set the ambiance and instilled excitement for the five-day journey to Walt Disney World. The elaborate themed displays are commendable; however, the countless contributions are praiseworthy.

This annual trip’s ‘ohana Hawaiian theme describes the genuine

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relationship between Carter’s Charitable Foundation and Bert’s Big Adventure. Through the company foundation, the Atlanta-based children’s apparel retailer first partnered with Bert’s Big Adventure in 2010, making it one of the nonprofit’s longest-tenured partnership.

The partnership sparked the creation of the Fairy Godparent volunteer program, which is generously sponsored by the Carter’s Charitable Foundation. The Fairy Godparent volunteer program supports Bert’s Big Adventure’s children and their families through the stress and uncertainty of hospitalizations. Its volunteers — many of whom are Carter’s employees — visit Bert’s Big Adventure children at partner hospitals daily throughout their hospitalization, bringing toys, activities, food and a much-needed break for the entire family.

Since then, volunteers have completed nearly 2000 hospital visits!

Thank you, Carter’s Charitable Foundation!

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AVALON IN ALPHARETTA

by Shar-Lisa Andrews ert’s Big Adventure loves to create unique VIP experiences for the kids and their families. Our friends at Avalon in Alpharetta share that mission. For the third consecutive year, one of the most magical nights for our kids and their families was the Noon to Night Fashion Show held Thursday, September 14. Fifteen Bert’s Big Adventure kids strutted their stuff on the runway under the gorgeous moonlight to a packed crowd cheering them on. The evening was a beautiful inspiration to all of the fans of Avalon and Bert’s Big Adventure as our kids led the

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professional and celebrity models down the runway, showcasing an array of Avalon retailer fall fashion.

The Avalon Noon to Night Fashion Show has gained a national reputation for excellence and now sets the standard for Atlanta fashion shows. The third annual fall event raised more than $50,000 and more than $120,000 for Bert’s Big Adventure in the show’s three years of existence. Our kids are chomping at the bit for the fourth annual event, scheduled for Thursday, September 13, 2018.

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AGE: 5

HOMETOWN: Hapeville, GA

DIAGNOSIS:

Acute Myeloid Leukemia (AML)

FAVORITE FOOD: Pizza

FAVORITE MOVIE: Cars

WHEN I GROW UP I WANT TO BE: A firefighter/hero

TRIP SOUVENIR:

Superhero mask and cape!

TRIP MEMORY: All of it!

Khairi Brown,

RING the

BELL “We’ll never forget the

day he rang that bell. I’ve seen Khairi gaining weight, smiling, having fun and getting to realize that life is a blessing ever since.”

by David Crawford iagnosed with acute myeloid leukemia at just 4 years old, Khairi Brown fought through six months of intense chemotherapy and radiation.

He lost his eyesight for nearly two weeks during treatment, and by the last round of chemotherapy, Khairi couldn’t stand on his own. His mom, Michella, applied for Bert’s Big Adventure after being handed a copy of this magazine (2017) while staying with Khairi in the hospital.

“Never in a million years did I think he would get picked.”

Before finding out Khairi was selected to be a Bert’s Big Adventure VIP, they received even better news: his leukemia was in remission. This also meant he got to ring the bell: a longstanding tradition marking the end of a person’s cancer treatment.

“We’ll never forget the day he rang that bell,” Michella said. “I’ve seen Khairi gaining weight, smiling, having fun and getting to realize that life is a blessing ever since. Thanks to Bert’s Big Adventure we got to celebrate all that in the best way possible!”

Michella added, “I feel like nothing can overcome us. Khairi is my best friend and hero.”

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– Michella, Khairi’s mom

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Spotlight

Hakuna

Matata

A irst Trip Perspective

by Davi Crimmins from The Bert Show

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B

efore this trip, I worried about a few things: I worried the kids wouldn’t like me. I worried about missing the bus. I worried about getting a family lost. I worried about sunburns and heat exhaustion. I worried about the inconvenience of a low battery on my iPhone in the park. I’m a bit of a worrier.

Then I met the parents and their beautiful children, and I heard these stories of strife and sorrow and perseverance. I heard about how scary the MRI machines can be for a child. I heard about the doctors using harsh medications like propofol to complete the four-hour process because they can’t sit still. I heard about the worry and absolute heartbreak that mom and dad experience when they watch their child scream and fight when that sleep takes hold.

They worry about illness and pain. They worry about stress and trauma. They worry about being able to afford the medications their child needs. From leukemia to brain aneurysms to organ transplants, they worry about life. And I was worried about my phone battery.

In Disney World, they have a saying: Hakuna Matata. It means “no worries.” No one deserves five days of no worries more than these families.

With your donations to Bert’s Big Adventure, you’re giving a desperately needed vacation to 13 remarkable families. So many firsts: first flights, the first family trip for some, being there when Shalaijah conquered her fears and rode her first roller coaster, or finding lactose free ice cream so that Link could eat ice cream for the first time. There was Braxton’s first time joining the rebel alliance and facing Darth Vader as a trained Jedi, or Carsyn writing his first stand-up comedy set. One day I’m going to open for that guy.

Your donations help a family smile again.

Your donations help a child’s confidence. Your contributions make us dance for hours. Your gifts make everlasting friendships and magical memories. I can tell you this all day, but wouldn’t you rather see your donations change a life?

Follow Bert’s Big Adventure on social media, and you’ll never be prouder of a dollar spent.

I’m profoundly grateful to be a part of this organization. I’m grateful for this incredibly humbling experience. I’m grateful for this perspective and all the squeezy hugs I’ve gotten for the last five days. I’m grateful to Bert’s Big Adventure and Bert & Kristin for the invite to join everyone on this miraculous journey. Thanks for changing me to the core in just five short days—I can’t wait to do it again.

Please, I implore you to go to www. bertsbigadventure.org/donate to donate today. Help these incredible families Hakuna Matata and smile again. I promise you no one in the world deserves it more. bertsbigadventure.org • bert's big adventure magazine 2018

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AGE: 5

HOMETOWN: Carrollton, GA

DIAGNOSIS:

Diffuse Intrinsic Pontine Glioma (DIPG)

FAVORITE CHARACTER: Mater

FAVORITE MOVIE: Cars

FIRST TIME:

Riding in a limo and flying on an airplane!

TRIP SOUVENIR:

Stuffed Dumbo and a lanyard full of Disney park pins!

TRIP MEMORY:

Mater’s birthday message!

by David Crawford eemingly out of nowhere during the 2016 holidays, Braxton Dollar’s left eye turned inward. Soon after, he developed double vision and headaches. His pediatrician recommended an eye doctor who sent them to the hospital for an MRI. Specialists diagnosed Braxton with diffuse intrinsic pontine glioma (DIPG), a highly aggressive tumor found in the brainstem Radiation, steroids, and chemotherapy began an ongoing treatment for Braxton. His mom, Kim, said that going on Bert’s Big Adventure meant the world to her family.

“It was amazing getting to see him be a kid again, having a blast with his brothers making memories in Walt Disney World.”

Knowing that Braxton’s birthday was during the trip and that he wanted to meet his favorite character, Mater, Kristin from The Bert Show spent weeks beforehand tracking down a very special present. She gave him a personalized video – a birthday greeting from Larry the Cable Guy, the voice of Mater, live on the air.

S

Braxton Dollar,

Braxton’s

BEST

FRIEND

“It was amazing getting

to see him be a kid again, having a blast with his brothers making memories in Walt Disney World.”

– Kim, Braxton’s mom

** Braxton Dollar, 6 years old, passed away on Sunday, June 3rd, 2018.

Hey Braxton! This is Mater…like Towmater without the Tuh. Boy I tell you what: it’s your birthday! If you ever get down there to Radiator Springs, we’ll do us some backwards drivin’. Maybe even go to Flo’s and get us somethin’ to eat. Alright Braxton, happy birthday! Don’t forget, you and me, shoot—we’re best friends! See ya later, buddy, this is Mater!

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IN MEMORIUM PAGE 81

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THESE SMILES MADE POSSIBLE BY YOU! AAA Adams Family Foundation Alternative Apparel Atlanta Braves Atlanta Falcons Atlanta Hawks Atlanta Moon Ride Atlanta Santa Speedo Run Atlanta Spine Atlanta Steeplechase Atlanta United Audi Atlanta

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Avalon Noon to Night Fashion Show Balloonacy Atlanta Bert’s Barbell Adventure Carter’s Charitable Foundation Cassandra Young Photography Children’s Museum of Atlanta Crane Nuclear Philanthropic Fund DASH Photography Davio’s Northern Italian Steakhouse Dentistry for Children Family Orthodontics Digital Dash 5K One Digital Health & Benefits

Dunkin’ Donuts Eco Tech Services Elbow Room Endeavor Air ExpressJet Airlines Gas South Georgia Association of Student Councils Grip Top Restoration Haagen-Dazs Hudson Grille Insurance House Jersey Mike's Subs

Thank You to bertsbigadventure.org • magical moments magazine 2018

Jett Business Technology Jocoba Marketing JYL Craven Hair Design Keller Williams of Woodstock Kevin & Cindy Powers Life Time Athletic LuLaRoe Maggiano's Mattress Firm Moe's Southwest Grill Monarch Studio Patriots Point Links on Charleston Harbor

Physicians Alliance of America PomumPro Powerhouse Dance Center Primrose School of Acworth at Bentwater Primrose School of Suwannee West ProGraphics Q100 Renaissance Concourse Atlanta Airport Hotel RSM US LLP Salesforce Santa at Phipps

Phipps Plaza Sarah Esther Photography Sutherland Temporary Accommodations TA Cares The Color Spot The Grainger Foundation Tin Lizzy's Cantina Town Brookhaven Treehouse Experts Troika Studio Tucker Castleberry Unique Event Elements

Our Sponsors! bertsbigadventure.org • magical moments magazine 2018

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AGE: 11

Luis Escobar,

Hero’ s HERO “He saw Luis’ strength and willpower to overcome

HOMETOWN: Marietta, GA

DIAGNOSIS:

Germ Cell Brain Tumor

FAVORITE FOOD: Pizza

WHEN I GROW UP I WANT TO BE: A firefighter

FAVORITE SPORT: Basketball

TRIP SOUVENIR:

My Bert’s Big Adventure jacket!

TRIP MEMORY:

Walking through Avatar at night or getting a treehouse!

this illness and come back home. He found his own strength while witnessing his son’s strength.”

–Sarai, Luis’ mom

bertsbigadventure.org • bert's big adventure magazine 2018

by David Crawford uis Escobar’s dad was always his favorite superhero. Now, Luis is his dad’s, too. After going to the hospital on Christmas Eve in 2016, Luis was diagnosed with a germ cell brain tumor. He spent the next year undergoing intense treatments that included chemotherapy, radiation and brain surgery. Doctors removed most of the tumor, but were unable to reach a small part wrapped around a main artery supplying blood to his brain.

Luis and his mom, Sarai, spent months traveling to Cincinnati for specialized radiation treatments that were unavailable in Atlanta. They drove home every weekend to be with their family; Luis has four siblings! His dad stayed in Georgia to work and support the family, but he felt hopeless and useless not being able to protect his son from cancer. Sarai said Luis unknowingly helped his dad fight through these emotions.

“He saw Luis’ strength and willpower to overcome this illness and come back home.

He found his own strength while witnessing his son’s strength.”

Still standing and smiling after fighting a brain tumor into remission, Luis became his hero’s hero.

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TROIKA STUDIO

T

roika Studio partners Michael Birchall and Seth Ferreira’s long relationship with Bert’s Big Adventure began in 2009 when they were recruited to help create the layout and design of our inaugural issue of the magazine.

Now, Troika does everything for the organization from building and maintaining the website to filming and producing YouTube videos. Seth and Michael also go on each annual trip to Walt Disney World as videographers, Big Adventure staff members, and jack-of-all-trades helpers, often working behind the scenes on the fly.

“Troika Studio is part of the Bert’s Big Adventure family,” said Molly Darby, executive director of Bert’s Big Adventure. “Yes, they help with videography, web, the magazine, and design. But what they really do is capture these beautiful moments of the Bert’s Big Adventure kids being heroic and brave, and they help us tell the stories of our kind and courageous kids.”

Check out how Troika Studio captures these magical moments by visiting the Bert’s Big Adventure YouTube channel, or by going to www. bertsbigadvenutre.org.

ATLANTA SANTA SPEEDO RUN

O

n Saturday, December 9, 2017, people from all across Atlanta celebrated the ninth annual Atlanta Santa Speedo Run in the snow!

The festivities kicked off at Hudson Grille - Midtown with a pre-party at noon followed by more than 100 runners who came together to run a mile in their Speedos and holiday-inspired swimwear all to benefit Bert’s Big Adventure. The run raised nearly $70,000 for the wonderful cause!

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ATLANTA MOON RIDE

E

very June Bert Weiss says to Atlanta Moon Ride founder, Joel Darby, “that was the best event ever and I don’t know how you are going to top it.” Not surprising, Joel reaches down, led by his passion for Bert’s Big Adventure, and outshines the previous event every year. The 6th annual Atlanta Moon Ride was no letdown, it shined big time.

For most people, it’s hard to imagine more than 5,000 bicycle

riders riding casually, all lit up, under the moonlight, through the coolest neighborhoods of Atlanta, but it really happens. You have to be there to witness the magic. Through the efforts of Joel, Laken Sullivan, more than 250 volunteers, the community of sponsors and the 5,000 riders, the Atlanta Moon Ride raised more than $50,000 for Bert’s Big Adventure.

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AGE: 12

HOMETOWN:

Powder Springs, GA

DIAGNOSIS:

Disseminated Juvenile Pilocytic Astrocytoma, Brain Aneurysm

FAVORITE MOVIE: The Lion King

FAVORITE SPORT: Basketball

WHEN I GROW UP I WANT TO BE: A drummer

TRIP SOUVENIR: Black Panther hat!

TRIP MEMORY:

The cool new Avatar Flight of Passage 3D ride!

Zy Fagin,

Rise UP “His spirit makes me feel

by Sheridan Smith hile going to bed one night eight years ago, Zy Fagin didn’t feel like his usual spunky self. As the night progressed, so did his condition. He woke up screaming that he couldn’t see. Shortly after, he had his first seizure. Doctors found a tumor on his brain, down his spinal cord, and in the spinal sack.

Treatment hasn’t made things easier. Zy suffered a stroke during surgery that left him immobile, partly blind and needing months of therapy to recover. His cancer did not respond to chemotherapy. He is currently waiting for potential surgeries and clinical trials to open.

Zy still lacks his eyesight, but it doesn’t get in his way. He is the most high-spirited 12-year-old boy you will ever meet! He becomes fast friends with everyone he meets, always showing how he lives his life with joy and passion. Crystal, Zy’s mother, explained that her son chose long ago to rise up when faced with adversity.

“He never lets anything get him down,” Crystal said. “His spirit makes me feel like I can do anything! The one thing that I want him to know, even if I don’t say it enough, is that I’m so proud of him.”

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like I can do anything!”

– Crystal, Zy’s mom

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wishgranters

Gas South Gas South is a new member of the Bert’s Big Adventure family. Wow, did they come through in a big way.

Through its “Light the Season” winter 2017 campaign, Gas South donated $25,000 to Bert’s Big Adventure. The motto of Gas South is “the difference is good.” Bert’s Big Adventure can attest to that motto and their mission of “driven to be a fuel for good.” Really good for Bert’s Big Adventure!

Häagen-Dazs Just when you think Häagen-Dazs ice cream can’t get any sweeter, they somehow manage to make our partnership a little sweeter. Every July, Häagen-Dazs and its Atlanta and Charleston area franchises host a day when 100 percent of sales are donated back to Bert’s Big Adventure. Above and beyond that donation is the passion they have for our families while they provide the cool sweets for many of our events throughout the year.

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wishgranters

Digital Dash 5K Our friends at OneDigital Health and Benefits continue to shower our Bert’s Big Adventure kids with love as part of their annual Digital Dash 5K run in Marietta Square.

Chairwoman Brittany Floyd and her fellow OneDigital runners know how to treat our kids with a VIP experience through the fun-filled pep rally and amazing race. Once again OneDigital ran up huge race numbers, donating $25,000 to Bert’s Big Adventure.

Dunkin’ Donuts Dunkin’ Donuts and its Joy in Childhood Foundation continued to support Bert’s Big Adventure with a $12,000 donation in 2017. Dunkin’ Donuts franchisee Stephen Attard is a passionate supporter in many ways. We are proud to continue to partner with Stephen, Dunkin’ Donuts and the Joy in Childhood Foundation.

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AGE: 5

HOMETOWN: Winder, GA

DIAGNOSIS:

Pontocerebellar Hypoplasia

WHEN I GROW UP I WANT TO BE: A dentist

FAVORITE CHARACTER: Iron Man

FIRST TIME:

Eating ice cream!

TRIP SOUVENIR: Bubble wand!

TRIP MEMORY:

The fire dancer at Disney’s Polynesian!

Link Hargrove,

The Missing

LINK “This trip was way more than we could have ever hoped for!”

by David Crawford leo Hargrove—who goes by the name “Link”—ate ice cream for the first time on Bert’s Big Adventure and loved it!

While Link’s issue with ice cream was the lactose, his doctors once said he would never be able to swallow any food or liquid his entire life. He was born missing both his pons and cerebellum, parts of the brain responsible for intellectual development and motor control.

Diagnosed with a rare condition called pontocerebellar hypoplasia, Link’s growth milestones—both physical and mental— were difficult to keep up with from the beginning. His treatment became a series of occupational, physical and speech therapies, all trying to get other parts of his brain to take over.

Whether it was Disney World’s lactosefree ice cream, the fun rides or all the new friends, Link’s dad said Bert’s Big Adventure may be the therapy his son has been missing.

“I can't explain it but Link grew this trip! His Grandma was the first to point it out and then I started noticing things. His speech, vocabulary, and confidence in his speech improved greatly!

His desire for independence also increased.

This trip was way more than we could have ever hoped for!”

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– Gordon, Link’s dad

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“The best part of the Fairy Godparent program is knowing someone will come by and just hang out. Also, having someone bring the stuff we need--shampoo, toothpaste, Advil--is a lifesaver! The Fairy Godparent visits allow me to take a little break if I need to step out of the room. Since we are admitted for a few weeks at a time, the volunteers bringing real food is a really nice treat!”

-Kesha Nuckols, mom of Ashlyn Nuckols, Bert’s Big Adventure 2009

The Fairy Godparent volunteer program is one of the four programs provided by Bert’s Big Adventure to the families it serves.

Any time a Bert’s Big Adventure child is admitted to a partner hospital, they receive a daily visit from a Fairy Godparent volunteer. Sponsored by the Carter’s Charitable Foundation, in 2017 this program engaged more than 100 volunteers who collectively logged over 450 hours of hospital time visiting with Bert’s Big Adventure kids and their family members. Bert’s Big Adventure volunteers brighten their days by bringing a delicious meal (a break from hospital food) and entertainment with a small activity, like crafts, games or even manicures for the girls.

“The Fairy Godparents truly brighten our days in the hospital.

Evan loves having new visitors and catching up with the ones we have come to love. Some days I just need some adult conversation and the Fairy Godparent volunteers come to my rescue. They bring us food, toys, or anything else we need. The love, care and cheer they give us are priceless!

We are so thankful for Bert's Big Adventure and the Fairy Godparent program!”

-Heather Tucker, mom of Evan Tucker, Bert’s Big Adventure 2015

For the parents, the nearly 1,900 volunteer visits since the program’s inception also present a helping hand, offering them a moment of relief to leave the child’s side to take a shower, send an email update or take a muchneeded break.

With a wave of their magic wands, the volunteers of the Fairy Godparent volunteer program provide muchneeded support and companionship to the families of children who are facing insurmountable odds. To learn more, visit bertsbigadventure.org.

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AGE: 10

HOMETOWN: Austell, GA

DIAGNOSIS:

Multi-organ Transplant (liver/pancreas/small/large intestine)

FAVORITE SPORT: Gymnastics

WHEN I GROW UP I WANT TO BE: A gymnast

FAVORITE DISNEY CELEBRITY

Shalaijah Henry,

BBA

Minnie Mouse

TRIP SOUVENIR:

Minnie Mouse pillow pet!

TRIP MEMORY: Meeting Courtney!

by David Crawford ert’s Big Adventure VIP Shalaijah Henry only really wished for one thing after being selected to go on the redcarpet trip: to meet new people! A recipient of a multi-organ transplant involving her liver, pancreas and intestines, Shalaijah got used to hearing words like hospital and surgery in her world. She wanted to make friends who don’t care about the differences each other have.

On the first day of Bert’s Big Adventure, Shalaijah hit it off right away with fellow VIP Courtney— even before getting to Walt Disney World. The two were inseparable from the moment they met, sitting next to each other for every flight, bus ride and meal the entire trip.

They held hands while skipping through the Magic Kingdom, going on rides and becoming princesses together along the way. Shalaijah’s grandma said her granddaughter took the experience home with her.

“Shalaijah wears a smile whenever Bert’s Big Adventure is mentioned. It was the vacation of a lifetime and everyone we met is family for life, but more than anything she gained a best friend.”

While saying goodbye to each other on the trip, Shalaijah and Courtney declared themselves as forever-friends in unison: “We’re BBA-BFFs!”

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“It was the vacation of a lifetime and everyone we met is family for life, but more than anything she gained a best friend.”

– Susannah, Shalaijah’s grandma

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BIG Reveals

VIP Khairi 's mom cries tears of joy after being surpirsed with an apartment's worth of free furniture courtesy of Rooms To Go.

The team of magic makers at Bert’s Big Adventure specialize in making dreams come true. They do their best to create extra special surprises – or Big Reveals – each year at the sendoff party for some of the families with a unique need or interest. Whether it’s a family-size treehouse, much needed furniture for a new apartment, sitting in your favorite monster truck, or getting to be the youngest person ever to “drive the Golden Spike” before an Atlanta United game, the Big Reveals always lead to bigger smiles.

VIP Luis gets to hangout in his custom treehouse with his family thanks to Treehouse Experts.

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Famed monster truck driver Adam Anderson surprises Braxton with a VIP Monster Jam experience.

Atlanta United welcomed VIP LJ Tucker and let him drive home the Golden Spike.

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AGE: 8

HOMETOWN: Gainesville, GA

DIAGNOSIS:

Congenital Infantile Fibrosarcoma of the Heart

FAVORITE CHARACTER: Jack Skellington

FAVORITE BAND: Fall Out Boy

FAVORITE FOOD: Fried cheese sticks

TRIP SOUVENIR:

Avatar mountain banshee from Kristin!

TRIP MEMORY:

Quality time with family and Hollywood Studios!

Carsyn Long,

Without

A CAPE

“We believe this love and encouragement has shown Carsyn just how special he is!!”

by David Crawford arsyn Long was just a baby when diagnosed with muscle cancer of the heart. Doctors called it congenital infantile fibrosarcoma of the heart, citing him as the first ever known case of his specific condition. Nobody knew what to expect, and his mom was told he might not make it through his first year.

“I’ll never forget when they rolled the crib out of the hospital room and brought a regular bed into the room so that I could lay with him in case he passed away.”

With no standard treatment plan for Carsyn to follow, a combination of chemotherapy and three open heart surgeries left scar tissue on his heart that may one day require a transplant.

Carsyn appears to be a healthy kid, a fact that hasn’t always made growing up a medical anomaly any easier. He’s been picked on at school by peers who think he’s faking doctor-ordered precautions because he doesn’t look or act sick. Sometimes people can’t see a superhero without a cape.

His parents are grateful that Bert’s Big Adventure introduced their son to a group of people who love him just for being himself. “Now Carsyn is celebrated by his family and complete strangers. We believe this love and encouragement has shown Carsyn just how special he is!”

– Lauren, Carsyn’s mom

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AGE: 12

Kennedy Morgan,

HOMETOWN:

than MORE meets

THE EYE

McDonough, GA

DIAGNOSIS:

Autoimmune Hepatitis

FAVORITE COLOR: Coral

HOBBY:

Starting a charity to help other kids in need

WHEN I GROW UP I WANT TO BE: A nurse

SOUVENIR:

“Never judge a book by

Pandora ring!

the cover. This illness doesn’t have a face.”

TRIP MEMORY:

Meeting everyone at Hollywood Studios to ride all the cool rides!

–Kristin, Kennedy’s mom

by David Crawford ennedy Morgan is a fun-loving, 12-year-old girl who plays sports and dreams of being a model. When a person’s illness isn’t easily visible to the eye, it can be difficult for peers to understand the challenges. “If you look healthy, people tend to think, ‘you can’t really be that sick,’” says Kristin Morgan, Kennedy’s mom. But nothing could be further from the truth.

Kennedy suffers constant and chronic pain from autoimmune hepatitis, a rare disorder where her immune system thinks her liver is a virus and her own body attacks it. While the diagnosis is treatable, it is not curable and will one day require a liver transplant. “Never judge a book by the cover. This illness doesn’t have a face,” Kristin says. Autoimmune hepatitis is indeed often called an “invisible illness.”

Instead of focusing on the negatives, though, Kennedy chooses to lift the spirits of other struggling kids through a nonprofit she founded, Love to the Moon.

The charity provides custom care packages for children with chronic and terminal illnesses.

Kennedy feels it’s crucial that kids know that they’re not alone, and that there are other kids out there fighting with them. Just like her.

K

Find out more information and donate at www.lovetothemoon.care bertsbigadventure.org • bert's big adventure magazine 2018

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AGE: 5

HOMETOWN:

Lawrenceville, GA

DIAGNOSIS:

Somatic Overgrowth/ CLOVES Syndrome

FAVORITE SHOW: Doc McStuffins

WHEN I GROW UP I WANT TO BE A doctor

FAVORITE CHARACTER: Ariel

TRIP SOUVENIR: Ariel bubble wand!

TRIP MEMORY:

Riding roller coasters with Bert and becoming a princess!

Ashlynn Richards,

Princess Ashlynn’s

POOL

PARTY “I got to see Ashlynn laugh,

by David Crawford fter becoming an official princess during Bert’s Big Adventure’s annual trip to Walt Disney World, Ashlynn Richards shared her royal charm throughout the parks. She wore her dress on Space Mountain, riding the iconic roller coaster over and over in full regalia. Ashlynn even donned her crown at the pool at Disney’s Polynesian Resort. Anytime one of her new Bert’s Big Adventure friends showed up, she thanked them for coming to her pool party.

Ashlynn never showed any outward signs that she lives with tumors all over her tiny body. Diagnosed with CLOVES syndrome—a rare and incurable disorder—she has a five-pound tumor in her abdomen, along with other tumors that mold around her internal organs.

Her mom said Bert’s Big Adventure was cathartic for the entire family.

“My daughters and I had a week away from doctors and hospitals to relax and enjoy somewhat of a normal life. I got to see Ashlynn laugh, cry, make new friends and experience new fun things. We made memories that will last a lifetime. Oh, and I can’t forget the pool parties that she thought were hers.”

Princess Ashlynn said she couldn’t wait to see everyone at her annual summer pool party during the Bert’s Big Adventure annual summer pool party reunion at Life Time Athletic!

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cry, make new friends and experience new fun things.”

– Kimiko, Ashlynn’s mom

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AGE: 5

HOMETOWN: Newnan, GA

LJ Tucker,

DIAGNOSIS:

Diffuse Intrinsic Pontine Glioma (DIPG)

FAVORITE SPORT: Soccer

WHEN I GROW UP I WANT TO BE A police officer

FAVORITE CHARACTER: Mickey Mouse

TRIP SOUVENIR:

Big stuffed Mickey Mouse and Mickey Mouse blanket!

TRIP MEMORY:

All the rides, especially the Buzz Lightyear one!

SPIKE “He really loved taking the big light hammer to drive the Golden Spike in front of everyone cheering—he keeps saying it was so fun

by David Crawford J Tucker loved soccer from such a young age that he wasn’t allowed to play the sport. When he was old enough for signups, doctors had already diagnosed him with a highly aggressive brain tumor called DIPG. Bert’s Big Adventure teamed up with Major League Soccer’s Atlanta United FC to make LJ’s dream of getting the full soccer experience come true.

Atlanta United started a tradition where a celebrity hammers in a giant Golden Spike on their field before the game. On March 17, 2018, LJ joined that list after walking out of the tunnel onto the field with his family. At just 5 years old, he became the youngest person hitting the Golden Spike to start the game in front of 60,000+ screaming fans. He met the entire team, got a VIP locker room tour, received personalized gear, and enjoyed the game in his own suite full of a menu catered to his liking. He even saw his name and face on the jumbotron! His mom said they made him a fan forever.

“LJ loves Atlanta United! He really loved taking the big light hammer to drive the Golden Spike in front of everyone cheering—he keeps saying it was so fun he wants to go back!”

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he wants to go back!”

– Crystal, LJ’s mom

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AGE: 5

HOMETOWN: Acworth, GA

DIAGNOSIS:

Cerebral Palsy, Short Bowel (Gut) Syndrome

FAVORITE MOVIE: Frozen

WHEN I GROW UP I WANT TO BE: A model

FIRST TIME: Flying!

TRIP SOUVENIR:

Light-up singing Little Mermaid bubble blower!

TRIP MEMORY:

My princess makeover!

Nevaeh West,

Princess HEAVEN “I sat next to her in NICU, held her tiny hand and promised to take her to Disney World to become a princess when she was five.”

by David Crawford aving developed bacterial meningitis just hours after being born, Nevaeh West’s first life experiences included high fevers, seizures, a brain bleed and sepsis.

Fighting for every breath resulted in brain damage that led to cerebral palsy, epilepsy, and significant developmental delay. At five weeks old and following a series of surgeries, Nevaeh’s mom made her a promise.

“I sat next to her in NICU, held her tiny hand and promised to take her to Disney World to become a princess when she was five,” said Christa.

Five years later, they were inside Cinderella’s castle at the princess makeover chair. Nevaeh—who is still mostly nonverbal—stood in her dress unsure about the rest of the makeover.

Knowing everything that led up to this magical moment, a Bert’s Big Adventure staff member asked her if she wanted to sit with him and become princesses together. From lipstick and glitter nails to eye shadow and fairy dust, she excitedly allowed each, but only after he did the same.

As promised five years earlier, little Nevaeh— whose name backward spells Heaven—finally became an official princess while on Bert’s Big Adventure.

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– Christa, Neveah’s mom

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en ts ... VI M ag ic al M om

P Fa m ili es

F

OLLOWING THE ANNUAL TRIP, BERT’S BIG ADVENTURE STRIVES TO FURTHER STRENGTHEN ITS ESTABLISHED COMMUNITY AND FRIENDSHIPS

BY HOSTING QUARTERLY FAMILY REUNION ADVENTURES. THE EXCLUSIVE AND UNIQUE EVENTS PROVIDE THE FAMILIES WITH YEAR-ROUND OPPORTUNITIES TO ENJOY MORE VIP EXPERIENCES AND INTIMATE FAMILY TIME AWAY FROM DOCTOR VISITS AND HOSPITAL STAYS. nt s.. .VI Ma gi ca l Mo me

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On May 6, more than 400 Bert's Big Adventure family members gathered together to watch the Atlanta Braves vs. the San Francisco Giants at SunTrust Park for the first Family Reunion Adventure of 2018!

In addition to a delicious catered lunch in a private ballroom at SunTrust Park, the Atlanta Braves donated every single ticket for the families. To make things even more exciting, Atlanta Braves players Shane Carl, Sam Freeman, and Jesse Biddle surprised the families after lunch. They took pictures and mingled with the kids!

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Bert’s Big Adventure families enjoyed some fun in the sun at the 10th annual Splash Bash Pool Party Reunion Adventure!

For the second year in a row, Life Time Athletic in Sandy Springs donated their facility for our VIP pool party! Families gathered for an exciting, three-hour swim. DJ Willie T (aka Tommy from The Bert Show) made a guest appearance and provided some fun tunes the kids could dance to! Guests enjoyed gourmet burgers and hot dogs served by The Loaded Burger, delicious pizza from Blue Moon Pizza and shaved ice from Kona Ice!

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Thanks to the generous donation from Dentistry for Children and Family Orthodontics, this fall reunion was hosted at Dave & Buster's in Marietta! The families, joined by the Bert’s Big Adventure staff and a handful of volunteers, had a great afternoon enjoying unlimited gaming classics including Pac-Man, Skee-Ball, and Pop-A-Shot, along with other entertainment and a beautiful meal. A very special thank you to The Icebox for donating our awesome matching t-shirts!

bertsbigadventure.org • bert's big adventure magazine 2018

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It’s the most wonderful time of the year! Bert’s Big Adventure family members gathered at Phipps Plaza’s Court of the South for a Holiday Reunion Adventure with Santa at Phipps.

Santa at Phipps treated every guest to a complimentary visit and a donated photo package! Plus, Maggiano’s helped cater a beautiful holiday meal for everyone to enjoy. Balloonacy Atlanta – Holland and Sean Musico - helped bring the event to life with beautiful decorations! Our wonderful partners at Carter's Charitable Foundation sent 20 volunteers to assist the kids with decorating plates for Santa's cookies!

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Be Part

Magic of the

THIS ALL-EXPENSESPAID TRIP WOULD NOT BE POSSIBLE WITHOUT THE SUPPORT OF THE BERT SHOW LISTENING COMMUNITY. DONATIONS AND FINANCIAL SUPPORT BY VARIOUS ORGANIZATIONS AND INDIVIDUALS ARE ESSENTIAL IN CONTINUING NOT JUST THE BERT’S BIG ADVENTURE TRIP TO WALT DISNEY WORLD, BUT THE MANY ADDITIONAL WAYS THE ORGANIZATION ASSISTS THE SELECTED CHILDREN AND THEIR FAMILIES.

NOMINATE A CHILD Children may be nominated or may apply for the Bert's Big Adventure trip by filling out a nomination form or a confidential application. Bert's Big Adventure serves children with chronic and terminal illnesses between the ages of 5 and 12 years old who live in The Bert Show radio listening area, prove financial need and have never been to Walt Disney World. Applications are available on the organization's website: bertsbigadventure.org.

MAKE A DONATION Contributions can be either monetary or through fulfillments of the Bert’s Big Adventure “Wish List.” Information on both can be found at bertsbigadventure.org.

BECOME A SPONSOR Bert’s Big Adventure has multiple sponsorship and marketing opportunities available. Organizations wishing to participate should visit bertsbigadventure.org or call 678.929.8474.

VOLUNTEER Bert’s Big Adventure has several volunteer oportunities, from becoming a Fairy Godparent volunteer to helping at many of our fundraising events! Visit bertsbigadventure.org or call 678-9298474 for more information!

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WALT DISNEY WORLD • MAGIC KINGDOM • ANIMAL KINGDOM • HOLLYWOOD STUDIOS • EPCOT

2018

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KARMA Karma Little, 7 years old, passed away on Tuesday, September 19, 2017. She had Stage 4 Neuroblastoma, a rare type of childhood cancer that develops in infants and young children. Karma and her family went to Walt Disney World with Bert’s Big Adventure in 2017. The Georgia girl’s Facebook group, “Believe in Karmiracles,” inspired many to follow along and created a wealth of awareness around the challenges of the illness.

ZIYONN Ziyonn Carter, 14 years old, passed away on Thursday, June 29, 2017 after struggling with Spinal Muscular Atrophy Type 2, a condition that is characterized primarily by progressive muscle weakness that develops in children. Ziyonn went to Walt Disney World with Bert’s Big Adventure in 2013, along with his mom, Shavonda Watts; sister, Anyia Carter; and grandmother, LaVonia Watts.

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BRAXTON Braxton Dollar, 6 years old, passed away on Sunday, June 3rd, 2018 after his diagnosis of Diffuse Intrinsic Pontine Glioma (DIPG). DIPGs are highly aggressive, cancerous brain tumors found in the brainstem. Braxton went to Walt Disney World with Bert’s Big Adventure in 2018. The Carrollton, Georgia, boy’s battle with DIPG, as shown on the Facebook group “Battling for Braxton,” inspired many to follow his journey.

bertsbigadventure.org • bert's big adventure magazine 2018

NEXT YEAR’S TRIP DATES:

February 20-25, 2019 Now Serving: Atlanta, GA Brunswick, GA Casper, WY Charleston, SC Columbus, MS Dothan, AL Fort Wayne, IN Grand Forks, ND Indianapolis, IN Lansing, MI Macon, GA Mobridge, SD Nashville, TN Pierre, SD Rolla, MO Savannah, GA Shreveport, LA

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THESE

Smiles

MADE POSSIBLE BY JERSEY MIKE’S SUBS

Enjoying this magical moment “Mike’s Way!” Thank you Jersey Mike’s Subs for your continued support. During the next Day of Giving, scheduled for March 27th, 2019, Atlanta-area Jersey Mike’s will donate 100 percent of sales to Bert’s Big Adventure!