VOLUME 31, NO. 2 • ISSN 1044-1921 • SUMMER 2015
Why Visual Schedules Matter Employment Supports Celebrates Successes Recursos para Familias Hispanas
Mission Statement The Autism Society of North Carolina is committed to providing support and promoting opportunities which enhance the lives of individuals within the autism spectrum and their families.
Table of Contents FEATURES:
The Autism Society of North Carolina strives to create a community where people within the autism spectrum and their families receive respect, services, and support based on individual differences, needs, and preferences.
Why Schedules Matter ........................................................6-7
Maureen Morrell Honored with
The Autism Society of North Carolina respects the privacy of its members and those who receive our publications. We do not sell or otherwise share our mailing list, email notification list, or any other personal information with other businesses or organizations.
Lifetime Achievement Award ...............................................17
The Spectrum The Spectrum (ISSN 1044-1921) is published in January and August by the Autism Society of North Carolina, Inc. Copyright 2015. All rights reserved. Viewpoints expressed are not necessarily those of the Autism Society of North Carolina, Inc. or its Board of Directors. Editor: Amy Seeley Graphic Designer: Erika Chapman
Beyond Social Skills .............................................................4-5
Annual Conference Focuses on Lifelong Learning ...............8-9
Expert Bookstore Picks for the School Years . .......................22
ALSO IN THIS ISSUE: Message from the CEO ........................................................... 3 Advocacy & Public Policy .................................................10-11 Services ...........................................................................12-13 Camp Royall .......................................................................... 15 Hispanic Affairs ................................................................18-19 Chapters & Support Groups ............................................20-21
Would you like to work for the Autism Society of North Carolina? ASNC is a direct-care provider throughout the state with offices in Asheville, Charlotte, Fayetteville, Greensboro, Greenville, and Raleigh. We are always looking for qualified candidates who are passionate about helping individuals on the autism spectrum and their families.
Fundraisers & Events .......................................................24-27 Donations ........................................................................28-30 Call on Us . ............................................................................ 31
A variety of part- and full-time positions are available! Please visit http://bit.ly/ASNCcareers to learn more about current ASNC career opportunities. We appreciate referrals; please help us recruit the best talent by sharing the above link.
505 Oberlin Road, Suite 230 • Raleigh, NC 27605-1345 919-743-0204 • 800-442-2762 • Fax: 919-743-0208
ASNC is also supported by:
Message from the CEO
Frequently, I am reminded of how fortunate I am to work for an organization that benefits so many across North Carolina. In my role, I get to meet families and individuals affected by autism across a variety of locations and events, and I’m constantly amazed at their resilience, passion, and unwavering desire to help others and “pay it forward.” I am always humbled at these events. One recent event I attended that further made me appreciate the strength of our community was Zipping for Autism in Asheville, hosted by Sheena and Jeff Greiner. As an acrophobe, I never imagined I would zip line across the treetops in the name of autism, and I know there were several others who felt the same! At the end of the day, this was a great friend-raiser and fundraiser with more than $35,000 in donations. This money will be directly reinvested in programs helping individuals with autism in the western region. Again, I stand humbled. Events such as Zipping for Autism are evidence to me of the success we can achieve when our community comes together. As outlined in ASNC’s three-year strategic plan, our community has numerous critical areas that need a substantial amount of our attention. One such area is providing meaningful employment for our adults. Through ASNC’s Employment Supports Department, more than 40 individuals with ASD obtained jobs, and 30 received critical job training via our JobTIPS program in the past year. The program serves a total of 100 individuals, also providing long-term supports to adults who are currently employed. Certainly thousands more need this service across our state, but this is a great start! Another area of significant progress this past year was helping meet the needs of our community in rural areas. We have made significant strides by hosting a series of faith-based workshops in rural communities aimed at educating clergy about the signs and symptoms of autism but also how to meaningfully incorporate families into worship. Additionally, we have increased our online resources, including toolkits and webinars, to help families in hard-to-reach communities. (Find them at http://bit.ly/ASNCtoolkits and http://bit.ly/ASNCWorkshopCalendar.) We have also greatly expanded our Clinical team and the number of families served by our LifeLong Interventions (LLI) program. LLI is a new service delivery model that provides comprehensive treatment for ASD, across all skill levels and across the lifespan. Our model is behaviorally based and uses evidence-based, best practices to promote appropriate skills across all environments. This is a critical need for many of our families; there is a vast shortage of professionals who understand the needs of our loved ones with ASD.
Board of Directors Executive Committee Chair Sharon Jeffries-Jones Vice Chair Elizabeth Phillippi Secretary Darryl R. Marsch Treasurer John Delaloye Immediate Past Chair Beverly Moore
Directors Anu Bhatt John Cavanaugh Ray Evernham Barbara Haight Ruth Hurst, Ph.D. Monique Justice-Nowlin
ASNC also continuously helps our community through public policy work. Countless hours have been spent behind the scenes advocating for policies that will benefit and assist our loved ones. This past session at the NC General Assembly, ASNC staff worked on authorizing legislation for the ABLE Act, coverage of autism treatment under health insurance, and several other pieces of legislation of benefit to our community. The federal ABLE Act allows states to set up savings programs that are similar to 529 college savings but specifically for people with significant disabilities. ABLE savings plans would allow people with disabilities, their families, or friends to save money for future needs such as support, housing, services, health care, and personal care, without jeopardizing eligibility for other benefit programs. Legislation on insurance will ensure that private health insurance covers the diagnosis and treatment of ASD and will enable thousands to get much-needed early-intervention services. All of these policy changes will provide vital services, supports, and opportunities to our community. As I write this article, these policy changes are still in process and not finalized, but they are all closer to passage as a result of our work.
We have had many more successes in the past year than I’m able to cover, and many more are planned for this coming year. As always, many of the successes listed above could not have been accomplished without the generosity of our donors. My sincere thanks to you all for enabling ASNC to help individuals with autism across the lifespan and across the spectrum. I look forward to seeing many of you this fall at our Run/Walk for Autism events!
Michael Reichel, M.D. Dale Reynolds Steven N. Scoggin, Psy.D. Dave Spicer John Townson John Wagner Dana Williams
Tracey Sheriff, Chief Executive Officer www.autismsociety-nc.org • 3
Beyond Social Skills
By Louise Southern, M.Ed., BCBA, ASNC Associate Clinical Director
There is a difference between teaching social skills and teaching social understanding. When we teach just social skills to individuals with Autism Spectrum Disorder, we basically address the “what” and the “how.” For example, if I am addressing the social skill of “entering a conversation,” I might teach an individual what to say to enter the conversation, how to say it, how to physically approach and how to stand, what type of gestures and facial expressions to use, and so on. These are important components to teach through repeated modeling and rehearsal. When we teach the performance of the skill, we show it, we provide guidance and feedback as the individual practices the skill, and then we fade out our guidance as the individual demonstrates the skill with increasing proficiency.
group open to me approaching; does the conversation circle look open or closed? What are some joining words I can use to make a “smooth” entry? We make these decisions and we enter “smoothly” by first pausing, looking and thinking. In order to have a “smooth” interaction, we continually have thoughts about the other people with whom we are interacting, and we also have to understand that they are having thoughts about us at the same time. We don’t (and should not) say everything that we think – we can have a “thought bubble” and a “talk bubble.” For some individuals with ASD, it is crucial that we explicitly address these building blocks of social understanding if our aim is to teach social skills.
But there is more to it than just the “what” and “how” of social performance. For many individuals with autism, it is crucial that we also break down, concretely and visually, and teach the underlying processes that govern what our social skills look like on the surface. We have to help some individuals to For many individuals with understand not only the “what” and autism, it is crucial that we “how,” but also the “why” behind these behaviors. This involves helping the also break down, concretely individual to understand how the social and visually, and teach the world works and why these social skills are important. underlying processes that
Furthermore, we have to help the individual with ASD to understand the rationale behind this process by starting with what matters to the individual and not to the instructor: Why does it matter to me if and how well I do this? How will others perceive my behavior if I do it the “right” way instead of the “wrong” way, and what are the social consequences of When we enter a social situation, we govern what our social skills doing it this way versus that way? If I try problem-solve, we read the context cues to follow the rules of the social world, look like on the surface. around us, and we make adjustments to how does this help me now and in the our social behavior based on what we future? Obtaining buy-in and building see and know about the situation. Let’s consider the social skill motivation is critical. Therefore, we must help the individual to of “entering a conversation” again. We make important decisions make a connection between their goals and the social skill we are before we approach a conversation: Who are these people and working to address. how do I know them? Is this the right time to approach? Is this
Are you reading ASNC’s blog regularly? Our Autism Resource Specialists, Clinical team, and Legislative Affairs staff contribute in-depth articles each month aimed at supporting individuals with autism and their families. Some of our most popular recent posts: • Keeping Our Cool When Things Get Heated • Adventures in High-Functioning Autism Behind the Wheel
• Tips, Myths, and Facts about the IEP Process • Peer Programs: A Win-Win Proposition
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Comprehensive Intervention Offered by ASNC’s Clinical Department What is this intervention?
LifeLong Interventions is a new service delivery model that provides comprehensive treatment for Autism Spectrum Disorder across skill domains and the lifespan. The service is rooted in the principles of Applied Behavior Analysis (ABA) and involves intensive teaching and training using evidence-based practices to promote appropriate skills and behaviors in the home and community.
Who can receive the service? Clients with ASD are accepted at any age, with treatment plans developed based on the results of intake and formal assessments.
Who provides the service? So where to begin with such a complex instructional process and what tools do we use to help us address not only social skills but also social understanding? Below are just a few curricula and supplemental resources to consider that might help you. These publications and many more on this topic are available at the Autism Society of North Caroline Bookstore; you can shop online at www.autismbookstore.com. • Michele Garcia Winner’s Social Thinking curricula • Social Skills Picture Books • The Hidden Curriculum for Understanding Unstated Rules • The PEERS Curriculum • The ECLIPSE Model • The New Social Story Book
Psychologists and Board Certified Behavior Analysts (BCBAs) in ASNC’s Clinical Department develop and directly oversee the intervention programs. All psychologists and BCBAs operate under the guidance of ASNC’s Clinical Director, Dr. Aleck Myers. Direct 1:1 training is provided by certified paraprofessionals who work under the direct supervision of our psychologists and BCBAs.
Where is the service offered? ASNC is currently offering the LifeLong Intervention service in the Triangle (Durham, Orange, Wake, and Johnston counties) and greater Charlotte areas (Union, Iredell, Mecklenburg, Gaston, Lincoln, and Cabarrus counties). We plan to expand to other parts of North Carolina based on demand and available resources.
• The Asperkid’s Secret Book of Social Rules
Who funds the service?
• The Incredible 5-Point Scale
ASNC is an in-network provider for the North Carolina State Health Plan (SHP). We are also in the process of becoming credentialed and in-network with other insurance carriers such as Cigna, United Healthcare, and Aetna. Several employers have opted to provide coverage for autism treatment within their employee benefits package. If you do not know whether your insurance carrier offers coverage for autism treatment, call the customer service number on the back of your insurance card. You may also ask Clinical staff at the Autism Society of NC to help you determine whether you're eligible for insurance reimbursement. We also provide this intervention service via private pay arrangements with families.
• Social Behavior and Self-Management • A 5 is Against the Law: Social Boundaries • Exploring Feelings: Cognitive Behavior Therapy to Manage Anxiety • Cognitive-Behavioral Therapy for Adult Asperger Syndrome ASNC’s Clinical Department is composed of PhD and masterslevel licensed psychologists, Board Certified Behavior Analysts, and former special education teachers. We provide a wide array of workshops (e.g., A Systematic Approach to Social Skills Instruction), and we offer individualized, intensive consultation and comprehensive programming using evidence-based practices to support children and adults across the spectrum in home, school, and other community-based contexts. For more information, contact Louise Southern, Associate Clinical Director, at email@example.com. g
How do I find out more? Sign up at http://bit.ly/ASNCtreatment to have a member of our Clinical Services team contact you about receiving services.
www.autismsociety-nc.org • 5
Why Schedules Matter
By Nancy Popkin, ASNC Autism Resource Specialist Our son Gray was diagnosed with autism three weeks shy of his third birthday, in 1996. The very first thing we were taught to do to help him navigate the complex and exhausting world of autism was to use a visual schedule. We have implemented many effective therapies and strategies over the years, but if I had to tell you which one has had the biggest impact on his life up to this point, it would be teaching Gray to use a visual schedule. And while the schedule he used in preschool is different from the schedule he uses today as a young adult in college, a visual schedule has been a constant companion all these years. In fact, I have found that the continued presence of a visual schedule in our son’s life has led to his peace of mind, his competence, and his independence.
The Purpose of a Visual Schedule Parents are often introduced to the strategy of using a visual schedule shortly after their child is diagnosed with an Autism Spectrum Disorder. Typically, it is recommended to help a child with autism transition from one activity to another, taking advantage of the fact that so many with autism are visual thinkers. But visual schedules have many other purposes. And this is why they matter so much throughout the lifetime of someone with autism and not just as an early-intervention strategy. Not only does the visual schedule help my son anticipate what is next and allow him to mentally transition from one activity or task to the next, but over the years, I have found a visual schedule has helped with these things as well: • Teaching the skills of waiting and deferring gratification by letting him see and know when he will get to do a preferred activity. • Lowering anxiety and providing comfort for my son because, in his words, he has a “pathological need to know the future.” • Creating an opportunity for him to learn responsibility and accountability because he has learned that if it is on the schedule, it must be done. • Giving me the ability to communicate to my son some new responsibilities or changes in his routine. • Teaching abstract concepts such as time management, planning, making choices, organizational skills, and flexibility. • Forcing me, as a parent, to be organized and plan ahead. Also, helping me avoid power struggles and stick with what is on the schedule instead of lapsing into negotiation. Those are a lot of lessons and opportunities coming out of one simple strategy. But there is one more: The visual schedule is the key to my son’s independence. Today, he knows how to make his
6 • The Spectrum, Summer 2015
own schedule. He likes having a schedule and is motivated by the success he feels at the end of the day knowing he did everything on his schedule. And for this reason, I am beginning to see his future as an independent, successful adult, despite all of the challenges of autism.
Our Visual Schedules over the Years The format and variety of visual schedules for individuals with Autism Spectrum Disorder is infinite and individualized. But over our son’s life so far, he has used a range of formats that serve as examples across this continuum. Just a few weeks after my son’s diagnosis, we made him his first schedule. It had photos of everything he would do on any given day at home, laminated, on a Velcro strip. We would put only enough photos on it to cover a portion of the day, such as the morning routine or a play session with a parent. At first, photos were removed and matched with the same photo in the location of the activity on the photo. Once he got good at that, the photos were removed and just put into a pouch on the schedule. Next, we needed to teach him to use the schedule in places other than the house, so we developed a portable schedule that could be used both at home and in the community. At this point, Gray had learned to read, so pictures were dropped from the schedule. We made it yellow, because at that time, if we wanted him to use anything, it had to be yellow. Pre-printed tabs with activities for
Regardless of what the schedule looks like, the most important characteristic of a visual schedule for someone who is learning to use one effectively is that the person using it must interact with it. This can mean that they remove the task from the schedule, move a marker from one item to the next along the schedule, or check, cross off, or erase completed tasks. Some will need to interact with the visual schedule all of their lives to assure that it is being followed. Others may make the transition to just looking at it, though the schedule still needs to be handy and obvious to them.
Some Parents Resist Visual Schedules Over my years as an Autism Resource Specialist, many parents have called for help solving problems. Often the first question I ask is whether they use a visual schedule at home. Typical responses include: • We tried it, but it didn’t work. Left: Gray in kindergarten. Above: Gray at college.
home (brush teeth, get dressed, watch video, play LEGOs) and the places in the community (grocery store, OT, playground, library) slid into slots as needed and were removed when completed. As Gray started learning to tell time, we began using dry-erase boards to write schedules. Small dry-erase boards were stored in strategic places (the kitchen, his bedroom, the car, in a travel bag) to be used whenever a schedule was needed. He could check off, cross out, or erase items as they were completed. By this time, my son didn’t need a schedule on days when the routine was set; he had learned that routine. But when we knew that things would be different, or there would be a lot of demands that day, we could just grab a dry-erase board and help him see what he would need to do. Often, I would make the schedule before breakfast and have it waiting for him at his seat at the table. We used dryerase schedules from his upper elementary years through his high school years. Prior to college, we taught Gray how to make his own schedule, and for that, we migrated the schedule to his iPad using the iCal app. On this schedule, he can color-code different kinds of activities and set alerts to remind him to get ready for a schedule change.
Teaching How to Use a Visual Schedule To teach someone how to use a visual schedule, it is important that the schedule be appropriate for the cognitive and developmental level of the individual using it. This applies to how each activity on the schedule is presented (using objects, photos, line drawings, words with pictures, or just words), the physical appearance of the schedule, and the complexity or number of steps on the schedule (a simple First/Then, a schedule for a portion of the day, a full-day schedule).
• She uses one at school, but I don’t want to be so rigid at home. • We used one when he was little, but he doesn’t need one anymore. • I just tell him what to do, and he eventually does it. • It is too overwhelming to make one or to consider everything we do in a day. To these responses, I try to explain that the visual schedule is like the foundation of a house. It provides support and structure. For these parents, I tell them of the day a few months after our son was diagnosed, that we figured out how to use the schedule to eliminate a particular, daily meltdown my son was having. I tell them about the day when my son was in middle school and he was panicked about getting weekend homework done but also having time to indulge in “precious free-time,” and he pleaded, “I need a schedule.” I also remind parents that if they are verbally prompting their child through all of his/her responsibilities, tasks, and activities at home, they are depriving their child of the opportunity to do these things themselves.
Independence is the Ultimate Outcome Independence is the ultimate outcome of raising all children, though independence will look different for each individual. For many individuals with ASD, a visual schedule is a ticket to autonomy, flexibility, and independence. This is true across the spectrum. I have found, time after time, that the schedule has opened doors and led our son to greater and greater amounts of independence over the years. And when he follows his schedule and accomplishes things, his sense of self-worth and pride increase. Gray still has autism, but he is learning to use the schedule himself to achieve his goals and dreams. And that sounds like the best practice to me. g
www.autismsociety-nc.org • 7
Annual Conference Focuses on Lifelong Learning The 2015 ASNC annual conference, “Autism: Lifelong Learning,” brought hundreds of parents, self-advocates, and professionals together for a weekend of education and networking. Drs. Robert and Lynn Koegel opened the conference with a practical presentation on Pivotal Response Treatment. On the second day, attendees had the opportunity to choose among concurrent workshops that addressed topics such as medical and psychiatric conditions that co-occur with autism, sexuality, and employing adults with autism. Dr. Geri Dawson, Director of the Duke Center for Autism and Brain Development, opened the second day with a fact-filled presentation titled: “Autism Spectrum Disorders: What do we know? Where are we heading?” For those who were not able to attend her presentation, we are sharing some of the highlights here, including exciting news about effective behavioral interventions and current clinical trials for medical treatments. Dawson started by talking about the prevalence rate of Autism Spectrum Disorder, which the CDC has reported as 1 in 68 among 8-year-old schoolchildren nationally, and 1 in 58 in North Carolina. The rising prevalence rate is also reflected in the number of clinical visits and unique patients they see at Duke, she said.
2016 Annual Conference Autism Through the Ages March 11-12, 2016 Hilton University Place Charlotte
Online registration opens September 15
Who are these individuals with ASD? Changes in the most recent Diagnostic and Statistical Manual of Mental Disorders, DSM-5, mean that Autism Spectrum Disorder (ASD) is not differentiated into subtypes such as Asperger’s Syndrome. ASD is diagnosed when an individual has problems with social communication and repetitive behaviors. Language delay is now categorized as a comorbidity, meaning it often is found in those with ASD, but not always, Dawson said. Asperger’s and PPD-NOS have similar symptoms, causes, and treatments, so they are not separated out. But that does not mean that individuals cannot continue to claim these descriptors, just that doctors will not diagnose that way, Dawson said. The neurodiversity movement is “powerful and positive,” she said, adding that the Duke center supports it. Other conditions that tend to co-occur in individuals with ASD include gastrointestinal problems, sleep difficulties, seizures, tantrums, self-injury, and aggression. Doctors are learning that by treating physical issues, such as GI problems, they can have a tremendous impact on behavioral issues, Dawson said. The challenge, though, is that individuals with ASD are not “good reporters” on health conditions. Recent research highlights the talents and strengths of people with ASD, Dawson said, including one study that found that more than 60 percent had at least one exceptional skill in areas such as memory, visuospatial, reading, drawing, music, and computation. She said that we should be focusing on these skills to help with the employment problem among individuals with ASD. Less than one-fifth of high-functioning adults with ASD are able to find employment after high school, she reported. This high rate of unemployment cannot be blamed on their ASD, she said; often anxiety and depression are the causes. In addition to unemployment, another sobering statistic she mentioned is the mortality rate among individuals with autism, which she said was six times higher than the general population’s. Risk factors include a tendency toward wandering, unsafe behaviors, side effects of medicines they might be using, seizures, and heart disease, which might be attributed to medicines and a lack of exercise.
8 • The Spectrum, Summer 2015
What do we know about the causes and risk factors for ASD? Autism Spectrum Disorder comes in many forms with many causes, many of which are still unknown. Breaking down the subtypes will help us to find treatments, Dawson said. Fifteen to 20 percent of cases can be traced to genetic causes including Fragile X Syndrome, neurofibromatosis, tuberous sclerosis, and certain risk genes. Once risk genes are identified, scientists can create “mouse models” of the mutation and identify the biochemical pathway that is affected. This can lead to testing of medications for individuals with ASD. For more information about autism and genetics, Dawson recommended the website http://sfari.org/. But ASD cannot be blamed on genetic risk factors alone – a complex interaction among genetic and environmental factors contributes to the risk. Some factors are protective, meaning they make it less likely that an individual will have ASD; two such factors are being female or folic acid being taken before or during the pregnancy. Other factors increase the risk of ASD developing: advanced parental age, premature birth, or inflammation during a pregnancy, which can affect fetal brain development. Such inflammation could be caused by maternal infection, maternal antibodies, pesticides, or traffic pollution. ASD disrupts long-range connections between brain regions, Dawson said. This causes problems with social interaction, which is a complex behavior that requires you to do several things at once. But at the same time, it might also explain the high level of skill in one specific area.
Promising directions in behavioral treatments Multiple studies of infants at risk for autism have made it possible to detect ASD and begin early intervention for such children even before they are a year old. Scientists studied siblings of children diagnosed with ASD from the time of their birth, recording their characteristics in great detail. Eventually, one-fifth of those infants were also diagnosed with autism. The researchers were then able to backtrack and find symptoms of autism emerging when the children were 6 months to 1 year old. These included more interest in toys than people, less babbling than their typical peers, failure to orient to their names, reduced social smiling, and fewer consonant vowel syllables. By 12 months, the children exhibited impaired joint attention, delayed gesture, delayed language, and poor social imitation. The exciting part of early detection is that it enables early intervention, Dawson said. With naturalistic developmental behavioral interventions, the intervention is incorporated into the child’s everyday life with their loved ones. Researchers have found that children learn about their world through active
exploration and that emotional engagement keeps their attention and encourages retention. Language development is built upon joint attention, so this is also a crucial skill. Some of the naturalistic developmental behavioral interventions that Dawson listed included Pivotal Response Treatment, created by the Koegels; JASPER; SCERTS; and Early Start Denver Model, which she co-created. A book she co-authored, An Early Start for Your Child with Autism, includes everyday activities and strategies parents can use for capturing attention, social engagement, nonverbal communication, imitation, joint attention and play, and language. “Learning occurs every moment,” Dawson said. “These strategies can be used throughout the day.” In one study conducted by Sally Rogers at the University of California, Davis in which therapy was delivered by parents, the children had few symptoms of ASD by age 3. Early behavioral intervention is successful because it is actually changing the course of brain development, Dawson said. Studies show that it improves IQ, language, and social behavior. Many individuals do still struggle with language and learning, so medical treatments are needed in combination to reduce the disability associated with autism.
The future: medical treatments Currently, only two medications are FDA-approved for autism, and they address associated conditions. They are Risperdal for those ages 5-16, and Abilify, for those ages 6-17. There is hope that in the next few years, some of the clinical trials going on now will translate genetic findings into drug targets, Dawson said. A current study at Duke seeks to determine whether infusions of umbilical cord blood – either that of the children themselves, or someone else’s – can reduce core ASD symptoms. Researchers hypothesize that the treatments might reduce neuroinflammation and are assessing behavioral and brain outcomes over one year. Another multi-site clinical trial that Dawson mentioned involves the hormone oxytocin, which regulates emotional and social behavior. Research funded by the NIH is assessing oxytocin’s effect on social communication in 3- to 17-year-olds. The University of North Carolina at Chapel Hill ASPIRE research program is conducting one of the studies. g For more information about Dr. Geri Dawson and the Duke Center for Autism and Brain Development, visit its website at www.autismcenter.duke.edu. Individuals and families can join the Duke Registry for Autism Research to receive information about events and activities, information about studies for which they might qualify, and free diagnostic evaluations and referral information. www.autismsociety-nc.org • 9
ABLE Act Gives Families New Tool
By Jennifer Mahan, Director of Advocacy and Public Policy
The Achieving a Better Life Experience (ABLE) Act, a federal law signed in December 2014, will give many individuals with disabilities, including those on the autism spectrum and their families, the opportunity to save for the future and fund essential expenses such as medical and dental care, education, community-based supports, employment training, assistive technology, housing, and transportation. The law allows eligible individuals with disabilities to create “ABLE accounts” that resemble the qualified tuition programs, often called “529 accounts,” that have been established under that section of the tax code since 1996. By saving for and funding critical daily expenses, these ABLE accounts will give North Carolinians with disabilities increased choice, independence, and opportunities to participate more fully within their communities. Without these accounts, people with disabilities have very limited ways to save, and any savings may prevent them from accessing other needed programs and services.
Key Characteristics of ABLE Accounts • An eligible individual may have one ABLE account, which must be established in the state in which he resides (or in a state that provides ABLE account services for his home state). • Any person, such as a family member, friend, or the person with a disability, may contribute to an ABLE account for an eligible beneficiary. • An ABLE account may not receive annual contributions exceeding the annual gift-tax exemption ($14,000 in 2015). A state must also ensure that aggregate contributions to an ABLE account do not exceed the state-based limits for 529 accounts. • An eligible individual is a person (1) who is entitled to benefits on the basis of disability or blindness under the Supplemental Security Income (SSI) program or under the Social Security disability, retirement, and survivors program OR (2) who submits
The Autism Society of North Carolina advocates for people on the autism spectrum on a variety of public policy issues including health care, education, employment, the state budget, and personal rights. ASNC’s public policy efforts further our mission to provide support and promote opportunities that enhance the lives of individuals on the autism spectrum and their families. As of the writing of this article, the legislative session is ongoing, and many of our bills and initiatives are still pending before the General Assembly. You can read more about all of our public policy initiatives on our website, on our blog, and through social media. We encourage those interested in partnering with us to get involved in advocacy to sign up for our Policy Pulse newsletter at http://bit.ly/ASNCPolicyPulseSubscribe. Your stories and personal contact with elected officials is a powerful way to achieve change in our system.
10 • The Spectrum, Summer 2015
certification that meets the criteria for a disability certification (to be further defined in regulations). An eligible individual’s disability must have occurred before age 26. • Q ualified disability expenses are any expenses made for the benefit of the designated beneficiary and related to his/ her disability, including: education, housing, transportation, employment training and support, assistive technology and personal support services, health, prevention and wellness, financial management and administrative services, legal fees, expenses for oversight and monitoring, funeral and burial expenses, and other expenses, which are approved by the Secretary of the Treasury. • Tax treatment: Earnings on an ABLE account and distributions from the account for qualified disability expenses do not count as taxable income of the contributor or the eligible beneficiary for purposes of federal tax returns. Contributions to an ABLE account must be made in cash from the contributors’ after-tax income. • Rollovers: Assets in an ABLE account may be rolled over without penalty into another ABLE account for either the designated beneficiary (such as when moving to another state) or any beneficiary’s qualifying family members.
Federal Treatment of ABLE Account under Means-Tested Programs, Including Supplemental Security Income and Medicaid • M eans-Tested Programs: Assets in an ABLE account and distributions from the account for qualified disability expenses would be disregarded when determining the designated beneficiary’s eligibility for most federal means-tested benefits. • Supplemental Security Income (SSI): For SSI, only the first $100,000 in an ABLE account will be disregarded. Assets above $100,000 will count as resources under SSI. If the designated beneficiary’s ABLE account balance exceeds $100,000, the
individual’s SSI benefits will not be terminated, but instead suspended until the individual’s resources fall below $100,000. It is intended that distributions expended for housing will receive the same treatment as all housing costs paid by outside sources. • Medicaid Eligibility: A beneficiary will not lose eligibility for Medicaid based on the assets held in an ABLE account, even during the time that SSI benefits are suspended (as described above for an account over $100,000). • Medicaid Payback Provision: Subject to certain limits and upon a state’s filing of a claim for payment, any assets remaining in an ABLE account upon the death of the qualified beneficiary must be used to reimburse the state for Medicaid payments it made on behalf of the beneficiary. The amount of Medicaid payback is calculated based on amounts paid by the beneficiary as premiums to a Medicaid buy-in program.
How Soon will ABLE Accounts be Available? • Federal Regulations: The Secretary of the Treasury issued draft regulations on June 22 that are up for public comment until September 21. A public hearing will follow on October 14. Final rules will be issued after that. • State decisions: Each state must decide whether to offer a qualified ABLE program to its residents. States offering ABLE accounts must then decide whether to have the state itself run the program, to select another entity to run it, or to contract with another state to allow residents to use that state’s program.
• North Carolina: At the time of this writing, North Carolina is in the process of passing legislation to offer ABLE accounts to NC residents. The House has passed the legislation and the Senate is poised to pass it on July 28 as part of its efforts to recognize the 25th anniversary of the Americans with Disabilities Act. The House and Senate have both put funding to administer the ABLE program in their budgets. The NC legislation states that accounts would be available once the NC Office of the Treasurer has the program up and running and federal regulations are set for ABLE accounts. While no specific time is set, we hope that accounts would be available in 2017. The Autism Society of North Carolina has supported the development of ABLE accounts, which will be another tool that families and individuals can use to create opportunities to enhance their lives. We will provide information to the public about how to access them as it becomes available. Please check the ASNC blog, website, and social media outlets for updated information and other helpful resources. We thank The Arc of NC for support in writing this article. ASNC has been proud to partner with The Arc of NC in support of efforts to increase asset building, promote independent living, and create more access to services and supports. You can read more about The Arc of NC’s public policy efforts on their website, www.arcnc.org. g If you have questions about this or other public policy issues, please contact Jennifer Mahan, Director of Advocacy and Public Policy at ASNC, at firstname.lastname@example.org or 919-865-5068.
Learn from the comfort of home! Our Autism Resource Specialists now offer webinar versions of their educational workshops. You just register online, receive a password from the presenter, and log in online at the designated time. What could be easier? The dozens of workshop topics cover the concerns that families and caregivers might have throughout the lifespans of their loved ones. From early intervention to IEPs to residential options to guardianship, we address it all. ASNC also presents these workshops in locations across the state each month, including some in Spanish. For a schedule of all of our workshops, visit
http://bit.ly/ASNCWorkshopCalendar www.autismsociety-nc.org • 11
ASNC’s Employment Supports Department, which has been expanding since 2013, is celebrating many successes this year. More than 40 adults with Autism Spectrum Disorder (ASD) have obtained jobs across the state with the support of the department. Employment Supports has served more than 100 individuals with work-readiness evaluations, job search, pre-vocational training, on-the-job training, ongoing job supports, and monthly support group meetings. The expansion in services is thanks in large part to the Walmart Foundation, which awarded ASNC a $25,000 grant for this fiscal year and $50,000 last year. More than 30 people have attended JobTIPS training in the Triangle, Triad, and Fayetteville regions, learning the skills necessary for networking, creating a resume, and interviewing. The 12-week series of classes are a $350 value but have been provided free to individuals through the grants.
them apply for jobs, work on resumes, and communicate with potential employers. Mobile work stations will also be helpful when ASNC staff are at job sites and want to take notes. ASNC’s Employment Supports department works with individuals interested in employment in other regions on a case-by-case basis. Contact your regional services office and speak with the regional director about your vocational goals. To learn more, go to http:// bit.ly/ASNCEmploymentSupports.
From an Employer’s Perspective At the Walmart Neighborhood Market in High Point, managers are doing their part to support individuals with autism. In May, they held an awareness event to educate their local community on the issue, which touches them personally because an assistant manager has a son with autism. As they planned that event, managers learned more about the challenges that individuals with autism face in finding employment and that people in their community were available for work.
Shannon Pena, Employment Supports Coordinator in Greensboro, said JobTIPS has been especially helpful for high-functioning individuals who Manager Bill Lewis said they contacted several Making the right needed help with social aspects of of them, and one has already begun working at match ensures happy work. The training helps them learn the store, gathering carts, bagging, and helping how to approach situations such as associates, a happy store, customers to their cars with their purchases. “Alldiscussing new opportunities with around, he’s just a great associate,” Lewis said. “He’s and happy customers, supervisors. One participant attended only been here a short while, but he’s already made JobTIPS expecting to seek a new job an impression.” Lewis said. but then used his training to receive a Lewis said that in his 25-year career with Walmart, he has had promotion with his current employer. Another participant used many co-workers with autism. “They’re a willing workforce that’s what he learned to fill out an online job application and land a job willing to come to work. … They do it with a smile. as a lifeguard for the summer. It has been estimated that about 80 percent of adults with ASD are unemployed or underemployed. ASNC’s Employment Supports program is specifically tailored for individuals to ensure they are placed in a job that reflects their unique interests and abilities. Individuals also receive comprehensive training and ongoing support throughout the program, to maintain employment in the long term. A portion of this year’s grant from the Walmart Foundation will be used for mobile workstations. The laptops with Internet access and software including Microsoft Word will enable employment support professionals to meet with individuals anywhere to help
T o learn more about JobTIPS, please use the following contacts:
12 • The Spectrum, Summer 2015
Fayetteville: Ashley Voss email@example.com 910-864-2769, ext. 1212
“I think it’s refreshing to work with folks who really enjoy what they do.” He advises other employers to keep an open mind about candidates with autism as they hire. He has not had to make any accommodations for his new employee with autism and said he expects to hire more, because they are often the most qualified candidates. “You have to match the person and their abilities to the task, and when you do that, things work out well for everybody. “I think it’s a resource that if you don’t go after it, you’re missing the boat.” g
Greensboro: Shannon Pena Raleigh: David Ingram firstname.lastname@example.org email@example.com 336-404-6664 919-865-5096
Oowee Products in Asheville Making a Difference The integration of individuals with Autism Spectrum Disorder into workplaces with typical peers enables them to build relationships outside their immediate families and circle of support and to develop a sense of greater connection to the community in which they live. Recently, one of the Autism Society of North Carolina’s longtime partners, Oowee Products in Asheville, successfully transitioned its employees with ASD to on-site workers, making an even bigger difference in their lives.
Gabriel Hargett founded Oowee in 2009 with a mission to produce quality goods that were responsibly manufactured and sustainable in the United States. Oowee makes beverage accessories out of wood, metal, and leather that can be branded with companies’ logos or an image of choice. By 2011, demand had picked up for the company’s first product, the leather pint-glass sleeve, and Hargett began looking for employees to help with production. He was strongly committed to providing employment for individuals who were differently abled and recognized that Oowee’s manufacturing process involved very structured tasks, making it a good employment opportunity for those individuals. In the Autism Society of North Carolina, Hargett found a collaborative partner with a mutual mission to provide meaningful work opportunities to people who often have limited options. ASNC joined with Hargett in his efforts to ensure that the production systems that were created by the company were accessible and understandable to all employees he would hire, including those with ASD. For a few years, Hargett contracted with several individuals with ASD to make the products off-site. These employees learned all facets of producing the leather beverage sleeves including sewing, sorting, matching, and branding the leather, as well as labeling, packaging, and tagging the finished products. Hargett was extremely pleased with the results of the work and was thrilled that his company was not only manufacturing in the USA, but was “doing it in a way that was providing job skills and employment opportunities for individuals in need.” As demand for Oowee’s products increased and the company continued to grow, ASNC and Hargett began to focus their mutual efforts on greater integration for his workers with ASD. Together, they set a goal of transitioning them from doing the work off-site, to the space in the Oowee warehouse with their typical peers. While the benefits of integration were the ultimate focus, there were initial concerns that the transition of all employees to the Oowee warehouse would be too difficult for some of the individuals with ASD or that the unique needs of its diverse employees would
not be able to be met. But Hargett’s collaboration with ASNC to identify and make needed – and often minor – accommodations resulted in a highly successful transition. As of this spring, all employees are working within his warehouse, including four individuals with autism. The transition for these employees to a fully integrated work site is a wonderful example of how individuals with ASD can be valuable members of the workforce and greater community when others recognize and value the contributions that they are ready and able to make. Oowee is continuously improving its work environment and processes to make production more efficient and easier for its employees. Hargett is also a strong advocate for a fair and livable wage for all of his employees. “In my opinion, our employees on the spectrum do a better job completing the task asked of them than most other individuals,” Hargett said. “I enjoy working with our employees on the spectrum and the Autism Society and hope to continue to grow and employ more individuals with autism in the future.” ASNC is extremely thankful for the partnership we have had with Oowee and the model they have provided for other employers. “Individuals with disabilities, including ASD, experience less turnover than non-disabled individuals, allow access to numerous tax incentives, and return an average of $28.69 for each dollar invested in accommodations,” said David Ingram, ASNC Employment Supports Director. “With individuals with disabilities and their networks representing a $3 trillion market segment, and 87% of customers preferring to patronize businesses hiring employees with disabilities, I’m excited to see businesses starting to understand, integrate their workforce more, and contact us seeking support in placing someone with ASD with their corporation.” g To learn more about Oowee, go to www.ooweeproducts.com.
www.autismsociety-nc.org • 13
Do you have what it takes to join our team? The Autism Society of North Carolina is always looking for qualified candidates who are passionate about helping individuals on the autism spectrum and their families. ASNC provides extensive training and education to prepare you to be your best. We offer both full- and part-time positions, with flexible hours and customized schedules throughout the state. We are always looking for candidates or referrals for the following positions: Community Skills Instructors provide one-onone services to individuals with autism ages 5 years through adulthood, teaching them valuable skills that greatly enhance their lives. We are seeking energetic applicants with a passion for working part-time with people with disabilities on individualized goals in areas such as social skills, communication, and daily living. Employment Support Instructors offer assistance to individuals with Autism Spectrum Disorder in finding potential employers, training for a job, and thriving in their new role, a key part of the transition to adulthood.
General Instructors and Residential Instructors work with individuals with autism in day programs or group homes in all aspects of daily living. They provide instruction in selfcare, communication, independence, leisure, and pre-vocational skills. The instructors also document individualsâ€™ progress toward goals and new development strategies for review with family members. Community Skills Coordinators collaborate with families, caregivers, and direct-care staff to manage the services and supports provided to help people with Autism Spectrum Disorder reach their individualized goals. They ensure that best practices are used to deliver quality service in compliance with all federal, state, and local rules and regulations.
Build your career with ASNC!
Join Us at Camp Royall All Year Each year, we come to the end of summer at Camp Royall completely exhausted, yet so full of joy. We have seen so many new and returning campers and staff members, and we are so thrilled to see how they have changed and grown. After this 44th season of summer camp, we turn our focus to our yearround programs, which enable hundreds more children and adults to experience the magic of Camp Royall, where we have been for 19 years. We will kick things off with our first Family Fun Day: a pool party on Saturday, August 22. We will offer swimming, hayrides, and a cookout at the pool. Please RSVP so we can prepare.
Family Fun Days will continue this fall, offering a daytime
opportunity for families to experience all the joys of camp together. Families can also stay the night in one of our cabins to extend the fun! Fun Days will take place on September 5, October 3, and December 12, which will be our holiday party with sensory-friendly visits with Santa. During Family Fun Days, everyone can participate in many activities, including boating, face painting, a cookout, hayrides, gym games, arts and crafts, etc. Family Camping adds dinner in our dining hall, campfire time complete with s’mores, and lodging in one of our cabins. We will also provide a light continental breakfast and more time to play at camp the next morning.
Mini-Camp Weekends are set for three
dates this fall: September 18-20, October 16-18, and November 20-22. Mini-Camp gives campers the chance to spend the whole weekend at camp, from 5 p.m. Friday to 12 noon Sunday. They will enjoy a miniature version of our summer camp program while families benefit from some respite; preference is given to campers living at home. Supervision at a ratio of 1:1 or 1:2 is provided for all campers during these weekends.
Adult Retreats give young, independent adults on the spectrum
a chance to spend time with friends as they enjoy a weekend at Camp Royall. This fall, retreats will take place September 25-27, November 6-8, and December 4-6. From 5 p.m. Friday to 12 noon Sunday, participants enjoy recreational activities at camp as well as outings in the community. We also plan to offer a couple of weeklong adult retreats, so be looking for those dates on our website.
Winter Camp will run at Camp Royall from
December 27 to January 1, during the holiday break from school. The program includes a 1:1 or 1:2 counselor-to-camper ratio, based on each camper’s level of need. Preference is given to campers living at home. Overnight and day camp options are available. We also plan to add some programming during other school breaks; please see our website in coming months for those dates as we set them.
Our Afterschool Program will start
up again for fall on August 24 and run until December 18. The hours are 3-6:30 p.m. each day with some transportation available. The children will take part in outdoor activities, homework time, group games, and gym play under the supervision of trained staff members. g Please contact our camp office for questions about any of the events at 919-542-1033 or firstname.lastname@example.org. For more information and to make reservations online for any event, please visit www.camproyall.org. Also check back later in this year for spring dates for all of the above programs as well as programs added during school breaks!
www.autismsociety-nc.org • 15
Find the support you need with ASNC’s free toolkits!
http://bit.ly/ASNCtoolkits The Autism Society of North Carolina strives to provide families and individuals with the tools they need to lead full and meaningful lives. In the past year and a half, we have introduced six easy-to-use, accessible toolkits to guide you through challenging times. All of the free toolkits can be read online or downloaded and printed.
Accessing Services Toolkit
• Services and supports available in NC for individuals with autism • Who is eligible? • How to apply • How to appeal a denial • Managing benefits
• Signs of bullying • Ways to prevent bullying • How parents and school staff can stop bullying
The IEP Toolkit • What is an Individualized Education Program (IEP) and who is eligible? • You are your child’s best advocate • The steps involved in writing an IEP • Accommodations and modifications
Behavior & the IEP Toolkit • Suspensions and the disciplinary process • Functional Behavior Assessments • Behavior Intervention Plans 16 • The Spectrum, Summer 2015
Residential Options Toolkit • Settings available, from group homes to independent • Financial options • Teaching independent living skills • How to research a group home
Advocacy 101 Toolkit • We need your voice! • How to find your legislators • How to write or call your legislators, with sample text • How to visit your legislators
Maureen Morrell Honored with Lifetime Achievement Award
Maureen Morrell, longtime advocate for individuals with Autism Spectrum Disorder (ASD) and their families, was recently honored with a Lifetime Achievement Award from the Autism Society of North Carolina (ASNC). Morrell, currently State Chapter Director for ASNC, also has served on the ASNC leadership team, as a board member, and as a volunteer.
In her current position, Morrell works with ASNC’s 50 support groups and chapters across the state. “There’s nothing I like better than having the opportunity to go to different parts of the state, meet with parents who are trying to help their own children and yet also have the generous spirit to organize and help all the families in their community. It is so inspiring,” she said.
Tracey Sheriff, ASNC CEO, presented the award at Catwalk to Camp Raleigh in May, calling Morrell a “consummate advocate for people with autism and their families” who had served with dedication and leadership. “Maureen has been a trusted advisor, a mentor, my moral compass, and a champion above everyone else. I’ve known her for nearly two decades, and in many ways, she is a ‘mom’ to all of us,” Sheriff said.
Terri Meyers, one of ASNC’s regional chapter directors, said Morrell’s colleagues appreciate her can-do attitude. “Maureen’s kind and sharing spirit is infectious,” Meyers said. “She is one who will not only organize and plan, she will roll up her sleeves and get right into the trenches for the cause.”
Morrell, who began her working life as a nurse, was motivated to advocate for individuals with developmental disabilities after the birth of the first of her three sons. Justin, now 36, has autism and lives and works in a residential farm community. Linda Griffin, ASNC Resource Specialist Director, said, “Maureen has been a part of everything great ASNC has ever done, from serving on the board, leading government relations work, organizing and supporting our 50+ chapters, starting the Triangle Run/Walk for Autism and supporting other fundraising efforts, to working with churches to ensure that our rural and minority populations get the training they need and deserve.” Marty Kellogg, State Chapters Coordinator, said, “My experience with working for Maureen is often like this: You wake up one day, and suddenly she’s got you doing things that you never dreamed you’d be doing – or dreamed that you’d be capable of doing. Ultimately, that special gift she has of making people believe in themselves and of stepping up to challenge and greatness is what makes Maureen the incredible leader she is.”
Don’t Miss a Thing! Want to stay informed about and connected with the Autism Society of North Carolina and the greater autism community? Sign up to receive our monthly email newsletters and the twice-yearly Spectrum at http://bit.ly/ ASNCStayInformed.
Morrell has worked with many North Carolina agencies and organizations over the years, serving on boards of directors and consulting. She also is a well-known speaker and co-author of the 2007 Autism Society of America’s Outstanding Literary Work of the Year: Parenting Across the Autism Spectrum: Unexpected Lessons We Have Learned. In 1998, she received ASNC’s Parent of the Year Award. Morrell said she was honored to provide a parent’s viewpoint to the work of ASNC. “The organization was founded by parents who were my mentors, and it’s always been a valued voice. I’ve been glad to have the opportunity to look at our strategic plans and add a parent perspective.” The longtime advocate has no plans to slow down anytime soon; she said there is plenty more to be done for individuals with autism in North Carolina. When asked their greatest need, she replied: “Being welcomed and included in all aspects of life in their community, whether that’s their family, their neighborhood, church, their parks and rec, their school, or employment. And also recognizing that while they have needs, they have strengths and gifts to offer us when they’re given the supports and services that they need.” g
You can also keep up with our events and the resources that we offer through social media: /AutismSocietyNC /AutismSocietyofNorthCarolina /autism-society-of-north-carolina www.autismsociety-nc.org • 17
Recursos para Familias Hispanas
La Sociedad de Autismo de Carolina del Norte ofrece muchos recursos para ayudar a las familias Hispanas afectadas por el autismo. Talleres en Español presentan temas tales como: entendiendo el autismo, Programas Individualizados de Educación (IEPs), y transiciones hacia la edad adulta. Los próximos talleres: • Autismo, Nutrición, y Problemas con la Alimentación: 18 de setiembre, 9:30 a.m.-12:30 p.m.; 7557 Ruben Linker Road NW, Concord • Como Ayudar a los Niños con Autismo: 19 de setiembre, 9 a.m.12 del mediodía; 114 West C St., Newton • Viviendo con el Autismo: Tener Éxito Como Padre/Madre A Través de la Vida: 10 de noviembre, 9:30 a.m.-1 p.m., Greensboro • Viviendo con el Autismo: Tener Éxito Como Padre/Madre A Través de la Vida: 12 de noviembre, 9:30 a.m.-1 p.m., Charlotte
cubrir la registración y los servicios de interpretación. Donaciones son recaudadas de empresas Hispanas y de eventos regionales de concientización del autismo llevados a cabo por los Grupos Hispanos de Apoyo. La Cena de las Sucursales/Grupos de Apoyo: ASNC realiza una cena anual para los líderes de las Sucursales y de los Grupos de Apoyo, en agradecimiento por su liderazgo y apoyo hacia las familias. Líderes Hispanos de Durham, Wake, Fayetteville/Robeson, Guilford, y Catawba asistieron este año.
Para ver el programa completo y registrarse online, por favor vaya al http://bit.ly/ASNCWorkshopCalendar.
Grupos de Apoyo Hispanos ayudan a los padres a conseguir información sobre programas, talleres de capacitación, y servicios en su lengua natal; compartir sus experiencias, preocupaciones, y esperanzas en un entorno cómodo y comprensivo; disminuir su sensación de aislamiento; y provee apoyo a otros miembros del grupo quienes necesitan ayuda.
Aquí están algunos de los eventos en los cuales los Grupos de Apoyo han participado recientemente.
Carrera/Caminata Triangle por el Autismo: Centenares de familias Hispanas de todas partes participan en el evento más grande de ASNC cada octubre, la Carrera/Caminata Triangle por el Autismo. Las familias asisten para promover la concientización y apoyar la misión de ASNC. En 2014, la estación de televisión Hispana UNIVISION-40 ayudó a promover el evento. ¡Únase a ellos el 10 de octubre de este año! La Conferencia Anual de ASNC: Padres Hispanos de todas partes del estado asisten a las conferencias de ASNC cada año. El Departamento de Asuntos Hispanos provee becas a los padres para
18 • The Spectrum, Summer 2015
Grupos Hispanos de Enfoque: Los grupos Hispanos de enfoque de ASNC en Raleigh y Greensboro proveyeron información valiosa a la Agencia de Salud Maternal y del Niño en UNC-Chapel Hill, la cual se propone a mejorar la identificación temprana del
Trastorno del Espectro Autista (ASD – iniciales en inglés). Los padres hablaron sobre sus experiencias con los chequeos de detección, diagnósticos, e intervención. Conocer los desafíos con los cuales las familias Hispanas y otros grupos minoritarios se enfrentan para obtener información y diagnósticos guiará las recomendaciones para mejorar el acceso al cuidado en nuestro estado. Talleres de Fe: Servicios de interpretación al español fueron provistos durante los dos talleres recientes de ASNC para capacitar a los líderes de la fe a incluir a los individuos y familias afectados por el autismo. Asistieron familias Hispanas del área de Fayetteville, líderes de la fe quienes hacen obras de alcance a los Hispanos, y líderes de los Grupos Hispanos de Apoyo del ASNC. Se Necesitan Patrocinadores: La división de Asuntos Hispanos reciben con agradecimiento las donaciones para proveer educación y promover las oportunidades para las familias Hispanas en todo el estado. Para más información, contáctese con Mariela Maldonado, Intermediaria de Asuntos Hispanos del ASNC.
Grupos de Apoyo: Alamance: Reunión el �ltimo viernes del mes, una vez cada trimestre, en la iglesia Haw River United Methodist Church, 127 Church Circle, Haw River. Coordinadora Voluntaria: Marieli Berdugo, 336-534-6664 Cumberland/Robeson: Reunión el �ltimo viernes de cada mes, 9:30-11:30 a.m. en la oficina regional del ASNC, 351 Wagoner Drive, Fayetteville. Coordinadora Voluntaria: Alma Morales, 910-785-5473 Durham: Reunión el tercer miércoles de cada mes, 11 a.m.-1 p.m., en El Centro Hispano, 600 E. Main St., Suite 100, Durham. Coordinadoras Voluntarias: Maricruz Romero, 919-620-0918 y Mayra Tapia, 919-450-6543 Guilford: Reunión el segundo jueves de cada mes en la oficina regional del ASNC, 9 Oak Branch Drive, Greensboro. Coordinadoras Voluntarias: Maggie Hanflkink, 336-298-6598 ó hanflkink@ yahoo.com, y Maria Correa, 336-698-5490 Johnston: Reunión el primer viernes de cada mes, 9-11 a.m., en The Partnership for Children of Johnson County, 1406 S. Pollock St., Selma. Coordinadora Voluntaria: Diana Wilkerson, 919300-9966 Mecklenburg: Reunión el segundo jueves de cada mes, 9-11 a.m., en la iglesia Our Lady of Guadalupe Catholic Church Parish & Hispanic Center, 6212 Tuckaseegee Road, Charlotte. Coordinadora Voluntaria: Maria Laura Torres, 704-430-0281 Wake: Reunión el segundo martes de cada mes, 6-8 p.m., en El Centro Para Familias Hispanas, 2013 Raleigh Blvd., Raleigh. Coordinadora Voluntaria: Yanely Rodriguez, 919-232-1870
Además, la Sociedad del Autismo en Carolina del Norte tiene la biblioteca más grande del país nfocada en el autismo, y ofrece muchos títulos en español.
Para mayor información o ayuda en español: Mariela Maldonado, Enlace de los Asuntos Hispano 919-865-5066 | email@example.com The Autism Society of North Carolina offers many resources to help Hispanic families affected by autism. For more information or bilingual assistance, please contact Mariela Maldonado (see contact info above).
Cabarrus: Reunión con el grupo de padres Latinos “Angels of Hope” (Ángeles de Esperanza) el segundo lunes de cada mes, 10 a.m.-12 p.m., en la iglesia Epworth United Methodist Church, 1030 Burrage Road NE, Concord. Lideres: Magnolia Aguilar, 704-493-9339, y Teresa Harris, 704-425-3967 Catawba: Reunión con el Grupo de Apoyo de las Familias Especiales Latinas de HOPE-Family Support Network una vez por mes en Newtown Library, 115 W C St., Newton. Coordinadora: Milagros Ramos, 704-308-7082
www.autismsociety-nc.org • 19
Chapters & Support Groups
A Season of Endings … and Beginnings
For our 50+ Chapters and Support Groups across the state, warmer temperatures herald in a season of celebration, awareness, and renewal. The past few months have been packed with Chapter activities – many designed to build community awareness of autism, others intended to educate and inform, and still others that allow families the opportunity to enjoy and appreciate one another in fun settings. With school ending for many of our families, the frenzy of spring has folded gently into the slower days of summer, and quite a few of our groups have taken breaks from formal meetings. This is also typically the time when our Chapter leaders reflect on what has worked well for their groups throughout the year and plan for what can be made even better in the next. We look forward to the new beginnings of fall: to folks who are joining one of our groups for the first time, to a sharing of new ideas, and to ever furthering ASNC’s mission of providing opportunities and support to individuals with autism. In celebration and thanks to our dedicated Chapter leadership teams and volunteers, here’s a quick look at what some of our groups have been up to this spring. We absolutely can’t wait to see what’s in store for the fall! For information on how you can become involved with one of our Chapters around the state, please visit http://bit.ly/ASNCChapters.
Nash-Rocky Mount Schools Awareness Event Promoting autism awareness in our schools is crucial. Nash-Rocky Mount Public Schools recently held an awareness and information event at Benvenue Elementary School in Rocky Mount. Patricia Cooper, the Edgecombe/Halifax/Nash/Wilson County Chapter Leader, and Autism Resource Specialist Katie Holler both attended, along with representatives from other community organizations. Holler shared information about autism and about accessing resources in the community. A highlight of the event was an Awareness Walk around school grounds.
Sampson County Chapter’s Glow Walk One of our newer groups, the Sampson County Chapter, held a tremendously successful Glow Walk in mid-April at the Farmers Market in downtown Clinton. The event featured a silent auction, hot dogs and baked goods, and a bounce house and face-painting for the kiddies. Families could also buy balloons, glow necklaces, and bracelets that “lit up” a Glow Walk at the end of the evening. “I am so excited to be a part of the awareness and support that we are bringing to Sampson County,” wrote Tracy Hollingsworth, Sampson County Chapter Leader. “I can’t describe the feeling it gave me to see how the people of our county supported us with their attendance. We had a huge crowd … not only for the auction, food, and face-painting but for the actual walk! We welcome new members into our group as we support each other and our children.”
To find a Chapter or Support Group near you, go online to http://bit.ly/ASNCChapters or contact Marty Kellogg, State Chapter Coordinator, at 919-865-5088 or firstname.lastname@example.org.
Lenoir/Jones County Chapter’s Goodie Bags Spearheaded by Chapter Leader Dana Woods, the Lenoir/Jones County Chapter gave festive goodie bags full of awareness materials to students in local EC classrooms, teachers, and bus drivers.
Autism Society of Cumberland County’s Bingo During its very busy April, the Autism Society of Cumberland County once again held a fabulous Vera Bradley Bingo awareness event and fundraiser at St. Patrick Catholic Church in Fayetteville. Not only did the 10th annual event turn out to be a great night of promoting autism awareness, but a few lucky attendees went home with some lovely Vera Bradley bags!
Onslow County Chapter’s Motorcycle Ride “Our 3rd Annual Motorcycle Ride was a huge success!” wrote Marina Jorge, Onslow County Chapter Leader. “Our annual event proceeds assist our Chapter in providing scholarships to send local residents with autism to Camp Royall. Each year, our motorcycle community amazes us with their generosity and support of our Chapter’s vision of providing local residents with their best week ever at Camp Royall.”
Triangle Chapters’ Dine 4 Autism For the second year running, the three ASNC Chapters in the Triangle – Wake, Durham and Orange/Chatham – held Dine 4 Autism at nearly 60 local restaurants. Through the hard work of dedicated volunteers and an impressive turnout for the event, the Chapters not only raised awareness but also substantial funds for ASNC’s Camp Royall and local Chapter activities. To help promote the event, the Wake County Chapter built a float and walked the Raleigh St. Patrick’s Day Parade in March. Pictured at right are Chapter members at Doherty’s Irish Pub and Restaurant in Apex, during Dine 4 Autism.
Richmond County Chapter The Richmond County Chapter held its 5th Annual Strike Out Autism event on June 15 at Strikers Bowling Alley in Rockingham. Pictured below right are members of Team Scott.
Forsyth County Chapter’s Training in Schools The Forsyth County Chapter held a May training for 20 assistant principals of schools with MAPs (Multiple Abilities Programs) or a high number of students with Autism Spectrum Disorder (ASD). ASNC’s Training Manager, Leica Anzaldo, gave the presentation. Lisa Goddard, who leads the new ASD Behavioral Support Team for WSFC schools, had this to say to the Chapter: “I just wanted to THANK YOU all for a great ‘Lunch-n-Learn’ for our administrators on May 20th!! I am getting great feedback which is music to my ears. This opportunity set the stage to what I hope will foster a better understanding, acceptance and desire to embrace our students with ASD.”
www.autismsociety-nc.org • 21
Expert Picks in the ASNC Bookstore
The School-Age Years: Resources for Parents & Teachers
Check out these favorites recommended by ASNC’s Autism Resource Specialists and Clinical team! You can use the listed codes to search for them on our website, www.autismbookstore.com. Wrightslaw: Special Education Law, 2nd Edition This updated resource breaks down the Individuals with Disabilities Education Improvement Act (IDEA) into terms that a parent can understand. BWRI01 Wrightslaw: From Emotions to Advocacy This guide will help parents and caregivers become better advocates for their children. Parents will learn how to communicate more effectively during IEP meetings by focusing on what children need based on present levels of performance and evaluation results. BWRI03 The IEP from A to Z This step-by-step guide on creating meaningful and measurable goals and objectives provides a helpful overview of the IEP process. BIEP01 Independence, Social, and Study Strategies for Young Adults This comprehensive toolkit supports students with ASD as they transition to college. It covers topics such as academic skills, navigating the social scene, and living away from home. The selfpaced workbook includes forms, diagrams, and tools – hands-on help where students with ASD need it the most. BIND01 The PEERS Curriculum for School-Based Professionals: Social Skills Training for Adolescents with Autism Spectrum Disorder This book brings UCLA’s highly acclaimed and widely popular PEERS program into the school setting. This 16-week program for middle and high school students also includes parent handouts, tips for preparing for each lesson, strategies for overcoming potential pitfalls, and the research underlying this transformative program. BPEE02
/AutismBookstore Keep up to date on the newest books & resources!
The Social Skills Picture Book: Teaching Play, Emotion, and Communication to Children with Autism All of Dr. Jed Baker’s social skills picture books are excellent tools for reading and reviewing with individuals with autism. The pictures in this book for children 12 and younger provide concrete examples of social situations they will encounter in school settings. BSOC02 The Incredible 5-Point Scale This guide assists individuals with autism in identifying behaviors, emotions, and anxiety and then having a concrete system in place to know how to manage those things. The scale can transition with individuals throughout their day. BINC10 Answers to Questions Teachers Ask About Sensory Integration This popular book by the author of The Out-of-Sync Child can help new and veteran teachers understand the sensory challenges of students with ASD. It is filled with checklists and practical tools. BANS01 Setting Up Classroom Spaces that Support Students with Autism Spectrum Disorders Classroom design is an important component of student success. This book follows two teachers as they turn their poorly designed classroom into an autismfriendly classroom using visual and strategic placement of items. The book includes lots of real-life photos. BSET01 The Ziggurat Model This book is a good resource for those interested in learning more about behavior plans and designing interventions. It presents a process and framework for designing interventions for individuals of all ages with high-functioning autism. BZIG01 Preparing for Life Dr. Jed Baker’s easy-to-use workbook for high school students transitioning to adulthood covers various topics such as relationships, social skills, and making career and education choices. BPRE04
Contact the ASNC Bookstore for help in finding resources on a particular topic or in assembling a purchase order.
800-442-2762 (NC only) | 919-743-0204, ext. 1132 email@example.com
Show Off Your Autism Pride! A is for...
Pre-order your T-shirt today!
Check out our latest T-shirt design to help promote autism awareness and pride! Pre-order yours by Sept. 15 and receive it by mid-October. • 100% cotton, pre-shrunk • $10 sizes youth small - adult XL • $12 sizes adult XXL - XXXL
A is for...
Acceptance Back by popular request! Did you miss out on the [get] autism T-shirt that debuted at World Autism Awareness and Acceptance Day in April? We will be making more and are accepting pre-orders online now through Sept. 15. Same sizes and specifications as the shirt above.
Autism Awareness Gear Declare your love for someone with autism or support ASNC with one of our popular car magnets! Find the magnets, as well as other ASNC apparel in limited sizes and quantities, in the ASNC Bookstore.
www.autismsociety-nc.org • 23
Fundraisers & Events
Spring Run/Walks for Autism Raise more than $140,000
This spring, more than 3,800 people joined ASNC for our Run/ Walk for Autism events, raising more than $140,000! We appreciate everyone who came together to improve the lives of individuals with autism, support families affected by autism, and educate communities. Beginning in March, we held events in Beaufort, Concord, Greenville, and Mount Airy. ASNC also held the Coastal NC Run/Walk for Autism in partnership with GHA Autism Supports to benefit services in the Wilmington area. We had terrific local participation from families, professionals, sponsors, and other community members at every event. The Run/Walks provide significant awareness about autism while raising much-needed funds throughout North Carolina. We are so appreciative of all of the individuals, families, and businesses that participated, donated, volunteered, or sponsored this spring!
Register Now for a Fall Run/Walk for Autism
WNC Run/Walk for Autism UNC-Asheville |September 12 wncrunwalkforautism.com
Greensboro Run/Walk for Autism UNC-Greensboro | September 26 greensbororunwalkforautism.com
Triangle Run/Walk for Autism Downtown Raleigh | October 10 trianglerunwalkforautism.com
Want to help us plan one of the fall Run/Walks for Autism? Many roles are available for volunteers in the months prior to the events and during the events. For more information, contact Heather Hargrave at 919-865-5057 or firstname.lastname@example.org. All of the proceeds from our fundraisers stay in North Carolinaâ€™s local communities to help individuals affected by autism. Whether you are a participant, donor, sponsor, or volunteer, your contribution makes an important difference!
Zipping for Autism Raises more than $35,000
The fourth annual Zipping for Autism was held June 7 at Asheville Zipline Canopy Adventures. This year, 200 participants raised more than $35,000 to support ASNC services in Western North Carolina. Teams were challenged to raise $800 to zip line with views of the Asheville skyline, and teams that raised more than $1,100 were also able to participate in the new Treetops Adventure Park. We thank Sheena and Jeff Greiner for putting together another amazing event! g
24 â€˘ The Spectrum, Summer 2015
Event Sponsors We thank the following sponsors of our events this spring; these events would not be possible without them. Please support these businesses and thank them for helping to improve the lives of individuals with autism and their loved ones. Visionary ($5,000)
Wild Wing Café
Hardison & Cochran Premiere Communications & Consulting, Inc. Port City Club Walmart Foundation
Champion ($2,500) Carolinas HealthCare Foundation/Levine Children’s Hospital Martin Truex Jr. Motorsports Mayfaire Town Center TrySports Visit Lake Norman
Partner ($1,000) Allen & Son Bar-B-Que Cape Fear Center for Inquiry Crosland Southeast Dr. Mike Reichel & ECU Family Autism Center Fairway Outdoor Advertising Fit for Life 24 Grandmaster Dong’s Martial Arts
Halley White, DDS, MPH Johnson Lexus of Raleigh My Aloha Paddle and Surf, Inc. Mountain Xpress PPD PPR Foods, LLC/McDonald’s Prestige Subaru Ricoh USA Roberts Family RTP Signs & Graphics Senn Dunn Insurance Spyglass Promotions US Foods
A Special Needs Plan Alliance One International Americare Pharmacy Behavior Consultation & Psychological Services Broad Creek United Methodist Church Bullseye Construction, Inc. Butterfly Effects Carolina CompuTech Coastal Kids Therapy Corning Inc. FASTSIGNS IBX Media Juicy Lucy’s Burger Bar and Grill Ken Melton & Associates, LLC Kennon Craver, PLLC OT Solutions Inc. Pediatric Possibilities Rack Room Shoes Ralph’s Sign Shop
Coastal Children’s Clinic Creekside Taphouse Derek and Susie Smith Diamond Brand Eastern Psychiatric and Behavioral Specialists, PLLC Emerald Isle Insurance Hobie Stand Up Paddleboards HomeCare Management Corporation Iannuci’s Pizzeria & Italian Restaurant John Pollock Julia Adams-Scheurich KANAHAS Overhead Door Company of Greenville, Inc. Paddle 2 Paradise
Panera Bread Pediatric Dentistry of Matthews Physicians East, PA Precision Plumbing Rising Sun Automotive SkyVista Satellite Communications Sokal Media Group Starbucks Stock Car Steel & Aluminum Teague Dentistry That’s Sew Unique Boutique Time Financing Service Top Shelf Waste U.S. National Whitewater Center
Join OT Sports & the Burlington Royals S AT U R D A Y,
29 9 am:
5K Family Fun RUN/ WALK FOR AUTISM
Burlington Royals vs. Greeneville Astros
Tar Heel Sports Properties The Athlete’s Foot The Peninsula Yacht Club Wells Fargo Advisors
Friend ($250) Arts Pool Service Autism Services of Mecklenburg County Blue Moon Water Carolina Therapy Connection, PC Chick-fil-A Children’s Health Services, PA Clinic for Special Children
For more information or tickets: email@example.com
Join us for the 5th annual 5K Fun Run/ Walk benefitting ASNC in the morning and receive free tickets to the Burlington Royals MiLB game that night! Or, just bring the family for a fun night of small-town baseball.
www.autismsociety-nc.org • 25
More than $80,000 Raised to Send Campers to Camp Royall
Camp Royall Classic Golf Tournament
Catwalk to Camp Our annual Catwalk to Camp fashion shows in Raleigh and Charlotte again gave attendees a fun way to support ASNC and provide scholarships to Camp Royall for individuals with autism. The fourth annual Raleigh event was a luncheon May 7 at the Woman’s Club. The second annual Charlotte event was held in the evening May 14 at The Olde Mecklenburg Brewery. Event attendees enjoyed delicious food and shows featuring the latest spring fashions from Macy’s. Also featured were fashions from Amina Rubinacci in the Charlotte event and from Smitten boutique in the Raleigh show.
Golfers gathered May 4 for the fourth annual Camp Royall Classic Golf Tournament at The Preserve at Jordan Lake. We were grateful for the opportunity to again partner with local McDonald’s franchise owners Paul, Pat, Rex, and Kelli Willoughby to make this tournament possible. We thank them for their support and hard work to help us provide a life-changing week at camp to individuals from across North Carolina! In total, the Catwalk for Camp and Camp Royall Classic events raised more than $80,000 to support the Autism Society of North Carolina’s Camp Royall Scholarship Fund. We are so grateful to all who participated. Be on the lookout for these events next spring!
Premiere Communications & Consulting: A True Partner
Premiere Communications and Consulting, Inc. has been a year-round partner to the Autism Society of North Carolina since 2012. Premiere’s innovative approach means company leaders not only support ASNC financially, they also participate in events, provide sponsorships, and connect ASNC with others who also might become supporters. Jeff Woodlief, President of Raleigh-based Premiere, said its leaders wanted to give back to the community and found a worthy partner in ASNC. “We have people in our office with family members impacted by autism and realize that many families in North Carolina must also be impacted,” he said. “ASNC makes a difference to real families in North Carolina by providing direct services.” Camp Royall especially has been a beneficiary of Premiere’s generosity. Volunteers from the company come out each year for a work day to prepare the grounds for the summer. One year, their team provided all of the equipment to clean the camp, ensuring a safe, clean environment for campers. They rewired the camp offices, adding data ports and new phone lines to provide a safer, more efficient work space for Camp Royall staff. They also have donated a work truck to camp and built a wheelchair-accessible ramp. Camp Royall is a special place for Woodlief, who has since joined the ASNC Board of Directors. “The first time I visited camp and witnessed firsthand the skits that the kids had worked on all week was a very powerful thing – to see the excitement and joy that camp brings not only to the campers but also the family members, and to have a place where kids can come together, be social, have fun, and learn to belong.” He said he also enjoys seeing the excitement and joy of families 26 • The Spectrum, Summer 2015
Jeff Woodlief (second from left) of Premiere and Chad Morgan (back center) of Accu-Tech take time out to clown around with some of Camp Royall’s campers.
uniting to support ASNC at the Run/Walks for Autism. Premiere first became involved with ASNC in the Triangle Run/Walk for Autism, organizing an employee team that fundraised and providing volunteers. The company also participates in the annual Camp Royall Classic golf tournament, recruiting the most players each year and providing a sponsorship. Premiere also has offices in Charlotte, and that staff has supported IGNITE, ASNC’s community center for young adults with high-functioning autism and Asperger’s Syndrome. Premiere Communications and Consulting has given more than $80,000 to ASNC and more than $65,000 through in-kind support. In addition, the company’s employees individually give to ASNC. “They are there every time ASNC needs them,” said Kristy White, ASNC Chief Development Officer. “They are my go-to people. I can call them anytime with a problem, and they will help me solve it. They get involved so we are equipped to meet the growing needs of the families in our community affected by autism.” Woodlief said, “It is my hope that in some small way Premiere’s partnership with ASNC is able to make a difference, a contribution that will help make someone’s life better.” Premiere Communications and Consulting designs, builds, and maintains the networks that make technology work. Learn more about the company at www.premiere-inc.com. g
Camp Royall Sponsors The Autism Society of North Carolina has been offering recreational, therapeutic, and educational summer camp experiences for the past 44 years to individuals with autism of all ages. Camp Royall is the largest and oldest camp exclusively for individuals with autism in the United States. Because of the generosity of the following donors, we were able to provide more than $140,000 in camp scholarships for summer 2015. We hope you will consider joining these donors in helping to provide a life-changing experience for a camper with autism. Please contact Kristy White at 919-856-5086 or firstname.lastname@example.org if you are interested in donating to camp, learning about named scholarships, or helping with fundraising. Benefactor ($10,000 -$24,999) BB&T Charitable Contributions Carolina Hurricanes Kids ’N Community Foundation Premiere Communications & Consulting, Inc.
Partner ($5,000 - $9,999) ASNC Wake County Chapter Community Foundation of Gaston County, Inc. Credit Suisse Ronald McDonald House Charities of North Carolina Strowd Roses, Inc. The Charlotte Observer Summer Camp Fund Lorraine and Dale Reynolds
Champion ($2,500 - $4,999) Carolina Panthers Charities Craven County Community Foundation Joe Moore & Company, Inc. ASNC Mecklenburg County Chapter Pfizer, Inc. The Eddie and Jo Allison Smith Family Foundation, Inc. Women of Fearrington, Inc. Chris Norton
Leader ($1,000 - $2,499) Acorn-Alcinda Foundation ASNC Edgecombe/Halifax/Nash/ Wilson County Chapter ASNC Onslow County Chapter ASNC Orange/Chatham County Chapter ASNC Pitt County Chapter Eastern Alliance Insurance Group FirstGiving Genworth Financial - US Mortgage Insurance Golden Corral Corporation Golden State Foods
Granville County Community Foundation Griffin Land Surveying Inc. Iredell County DSS Johnson Lexus Johnston County Community Foundation Kohl’s Care for Kids Moore County Community Foundation Pediatric Possibilities PPR Foods, LLC/McDonald’s The Eisner Charitable Fund, Inc. The Woman’s Club of Raleigh Triangle Community Foundation US Foods Wake Electric Foundation Walmart Sharon Jeffries-Jones Dolores McGovern Maureen and Rob Morrell Deborah Ramsey Sandra and John Reilly Susan and Marc Roth Yvonne M. Sagers Katie and Tracey Sheriff Nadette Welterlin-Hugg Kristy and Andrew White
Supporter ($500 - $999) Amundi Smith Breeden Associates LLC ASNC Gaston County Chapter ASNC Iredell County Chapter Buehler Motor Inc. Gregory Poole Equipment Company Hardison & Cochran Healthgram Inc. Ken Melton & Associates, LLC Kendra Scott Design, Inc. Learfield Communications, Inc. Lenoir County Community Foundation
Meredith College S&J Foods, Inc. dba McDonalds Senn Dunn Insurance Synergy Coverage Solutions Janet and James Cozart Lesley and Michael Graves Daniel Graves
Gail and Dennis Abraham Heidi and Kevin Bayerlein Gail P. Braun Kathelena and Daniel Burns Tammie and James Crawford Mary Dionne Carol and Doug Fink
Rosemary Kenyon Janice and Kevin Kidd Kathleen Krumpter Taunya A. Land Helene and Bill Lane Carol Manzon and Chris Diplock JoAnna Massoth and Dan Barnes Amy McClintock Jeanne McGovern and Michael Schwenk Tami and Thomas McGraw Lisa O’Connor Brenda Penland Doug Perry Michale Sanders Julia Price Scott Sherrie and Christian Shield Gina and Jeffrey Stocton Carolyn Talbert William Thompson Denise and Stephen Vanderwoude Kim and Jeff Woodlief John E. Yochim
Bradi and Christopher Granger Kate and Harvey Hall Shawn and Clarence Huggins Ruth Hurst and Tom Wiebe
Friend ($250 - $499) ASNC Lenoir County Chapter ASNC Randolph County Chapter Fidelity Charitable Gift Fund Gina Scott & Associates, Inc. Kiwanis Club of Lee County, Inc. KTL - McDonald’s, LLC Sokal Media Group Triple J Services
“I can’t find the words to tell you how impressed I am with Camp Royall. This week was truly life-changing for my son, and I really mean that. Before we even left at the end, he asked several times when he could come back. My son now has his first best friend, which is all he has ever wanted.” – parent
Christine and Lawrence Jones Christina LaFuria Judith Larrimore Lay Im Lee Darryl Marsch and Laura Luykx Sue and Jan Martin Cynthia and Joseph Marz Martha and Chris McCool Kat and David Moncol Mary Moss Patricia and Howard Oelrich Lillian and James Poole Dale and William Pully Linda and Kevin Routh Karen Salacki Susan Smith Barbara and Gordon Still Martha Webb Sarah and William Weiser Judy and Paul Wendler
www.autismsociety-nc.org • 27
The Autism Society of North Carolina would like to extend a heartfelt thank you to all of our donors. While we appreciate every gift, we have limited the donation list to Honorarium/Memoriam gifts in the interest of space and printing costs. Thank you for your tremendous support. This list reflects donations received on or between December 1, 2014 and June 30, 2015. Please contact Beverly Gill if you have any questions or corrections at 800-442-2762, ext. 1105 or email@example.com.
Honorariums Matthew Abbey
Demetra and Brent Abbey
Andrew Allen Clarissa and John Allen
ASNC Development Staff Maureen and Rob Morrell
Sanjay Asrani Madhav and Ratna Swaminathan
Hurakane Barona Dawn and Sergio Sanchez-Barona
Emilie Beacham Barbara Blake
Jennifer Beale Kristina Beale
Elizabeth Benpham Jean and Kenneth Oakley
Tyler Billings Vera Stamper
The Blakeman Family Wendy and Michael Badamo
Jake Bolewitz Cindy Harrison
Mikey Borneman Terri Sharpe
Richard and Felice Breener Kurt Klinepeter
Matthew Brown David Rathke
Stuart Brown Carolyn McCollum
John Burress, III Jack Williams
Elizabeth Byrum Thomas Byrum
Caleb Janet Palmer
Corey Cassady Amber Cassady Chandler Rock
Patrick Cavanaugh Cindy and John Cavanaugh
Ryan Cennamo Amie and Victor Cennamo
Katy Clary Carrie and Reginald Ponder
John Lee Coffee III Rebecca Coffee
Allysa Coleman Sylvia Dixon
Sidney Collins Marlene and Joseph Diorio
Matthew Cookson Mindy and Tom Storrie
28 â€˘ The Spectrum, Summer 2015
Thaddeus Coomes Susan Higginbotham and Don Coomes
Rachel Davis David Elmore
Richard Dawkins Gail Dawkins
Nancy Del Prete Joe Harder
Patrick Dunn Gloria and Rayvon Bennett
Beta Club and Faculty of East Wake High School Lewis Liles
Ehrmann Law Office Leah and Alvis Dunn
Eleanor Bluestein Susan and Reginald York
Nate Elkins Karen and Steve Strickland
Hunter Emmanuel Shannon and Paschalie Emmanuel
Matthew Evans Kathleen and Herbert Evans
Ray and Erin Evernham Meghan Kolb Michael Myrick
Nick and James Feller Kim and John Feller
Judge and Mrs. William Wellons Susan and Donald Beck
The Floyd Family Nichole Plavec
Liam Freeman Marsha and William Cannon Mr. and Mrs. Robert Hayes James Palmieri Jennifer Taylor
Ruth Fuller Sue and John McCarter
Sara Gage Robert Vaccarelli
Josh and Kelley Goodson Donna Gutterman and Stella Shelton
Susan Gounaud Joe Harder
Dana Grode Rhonda Grode
Mr. and Mrs. Ralph Harwood Beverly and Jesse Thomas
Bill Hemingway Nancy and Eddy Hemingway
Amelia and Bill Hirata
Sallie Ann and Bob Hart
Mary and Raymond Ramsey
Montwood Baptist Church
Robert and Angela House
Kathy and Lanny Vaughan
Barbara and Ronald Putnam
Jack Howard Marie and Joseph Blizzard
Jake Howard Marie and Joseph Blizzard
Connor Howrigon Dustin Clark
Paul Hoyt Patricia and Michael Petelle
Alana Huff Marie Horne
John Huskins The Greater Washington Society of CPAs
Larry Jacobs Anonymous
Miles Jones Suzanne and Daryl Jones
H.L. Joyner Ashleigh Phillips
James Lutz Jr. Nancy and Jerry Millwood
Elizabeth Mahan Broad Creek United Methodist Church
Kenny Martin Debbie and Jeff Martin
Austen Matheny Paige Moody and Sydnee Matheny
Patrick "Bryan" McGarry Donna and Jim McGarry
Sam McOwen Sallie and Stephen McOwen
Allison Meyer Erica Summers
Courtney Meyer Kathleen Krumpter
Jack Meyer Ruth Letvinchik
Eric Mihalyi Evalee Parker
Rosemary and Michael Spagnola
Mildred and Dillard Teer
Matthew Kelly Jean and Jeffrey Kelly
Julie Kimbrell Andrea Clodfelter
Max Kuller Susan and Jeffrey Kuller
Seamus Millet Lynne Turner-Liro
Amy Moore Chuck and Carol Moore
The Morrell Family
Helene and Bill Lane
Jack and Rita Lanorith Jim Garland
Joshua Lawrence Melissa Lawrence
David Laxton Evelyn Laxton
Save the Date! November 28, 2015 Davidson 3rd annual AmeriCarna LIVE to Benefit IGNITE
Janet and Wayne Breeding Rosemary Kenyon Christina LaFuria Deb Laughery Michael Morrell Ann and Robert Palmer Mary Edna Williams
Michael Jacob Morris Melissa and Michael Morris
Timothy Morris Jr. Timothy Morris
Sealy Nash Stephanie Brodsky
Kathy O'Brien Kate and Harvey Hall
Logan Outwater Lyn Fox
Pediatric Possibilities Jennifer Torrey
Jacob Petery Carolyn and John Underwood
Tuan Pham Family Jean and Gustav Leichte
Jeremy Pittman Robin Whaley
Bob and Gail Pope Doris and Mark Edwards
Nancy Popkin Melissa Travers
The Porter Family Lisa Moore
Nathan Potter Debra and Rob Potter
Kerri Powell Holy Infant Catholic Church
Brody Rangnow William Rangnow
Jack Ransom Susan and Michael Ransom
Andrew Raxter Judith and Lawrence Bender Joan and James Burke Jeanine Cardoza Richard Clancy Diane and Bartley Conlon Alfred Cramm Karen Croteau and Robert Dacey Joyce and Kenneth Dierks Regina and Lawrence Donovan Christine and Kevin Doran Stephanie Doucette Mary and Raymond Dowling Helen Durgin Teresa and Ty Espy Jane and William Farynaz Joan and Thomas Graney Laurie and Paul Hartenstein Traci Hefner Mandy Hinze Demarius Hooks Wendy and Brent Horten Natalie Hubert Lucille and John Kennedy Janet and George Malits
Bridget Mulholland Linda and Wayne Prowell Linda and Henry Raxter Felecia Rooney Nancy Slattery Andrea Spencer Elizabeth Supple Jean and James Wilson Dorothy Wynn
Charmain Reid Maureen and Rob Morrell
Maddie Reid Amy Reid
Jayden Richardson Ila Killian
Colin Edward Roberts Patti and Tollie Roberts
Dawn Rohlik Jennifer Torrey
Oliver Sassaman Valerie and William Sassaman
David Sasser Jean and Henry Sasser
The Seibert Family Gail and Bob Pope
Peggy Shufelt Gwynne and Bruce Chadwick
Courtney and David Sims Peter Davis
Worth Sims David Sims
Jonah P.C. Smith Janice and Earl Smith
Kassidy Smith Elaine and Donald Kaopuiki
Taylor Smith Ruth Letvinchik
Tim Smith William Corbett
Jamie Snyder Kathy and Michael Snyder
Isaac Soderstrom Amy and Ken Soderstrom
Samuel Soderstrom Amy and Ken Soderstrom
Marvin Spaulding Mary Ward
Bryson Stanford Erin Stanford
Louis Stolaross Ellen and Sig Tannenbaum
Miles Targosz Ellen Nielsen
Laura A. Taylor Barbara Carter
Kendra Yearick Kali Emans
Jasmine Tilden Denise and Paul ilden
Cody Townson Broad Creek United Methodist Church
John Townson Broad Creek United Methodist Church
Jim Turner Lynne Turner-Liro
Ryan Webb Roberta Allred
Joshua White Everett Johnson
Nicholas Williams Kathleen and James Jansen
Jesse Wills Katie and Lewis Wills
The Wills Family
Lori and Randolph Ward Susan and Roger Ward Maxine Wiggins
Rhonda Norris Blanchard George Armstrong Sue Baldwin Helen Cook Anne Crawford Laurie Davis Kristen Ertz Barbara Fraser Billie Knowles C. Ashley Mann June and William Mann Norma Massey
Gale and Charlie MacNeill
Will Laura Lough
Team Wyatt Judy Dunaway
Memorials Ann Alston Maureen and Rob Morrell
Jeffrey Apple Patricia Apple
David Taylor Ashley Marvin Ridge High School Gwen Ashley Peggy and Joseph Ashley Credell Coleman Nancy Myers
Janet R. Barber Debra Berry and Charles Barber Patricia Fox Lara and William Herbert Maureen and Rob Morrell Lynn Rook Doris and William Russell
Shirley Bedford Anne and Hal Travis
Homer B. Benton St. Peter's Episcopal Church Betty and Allan Barnes Betty and William Benton Debra and Bernard Hofler Linda Hofler Catherine and Kenneth Jernigan Peggy and Alvin Johnson Sandra Jones Linda and Walter Jones Patricia and Andrew Matosky LaRoyce Nixon Franklin Stallings
Karla Nantz Linda Otto Lorena and Robert Ransdell Nancy and Mark Ranta Cyndi Robinson Nancy and David Salmon Matthew Scialdone Jean and Dick Suggs Lynn Thomas Linda Weiner Amy Woynicz
Ronald E. Boarman Linda Browing Raymond Hansert
Marie Brown Tri City Auto Salvage, Inc.
Samantha Oliver Brown Eleve Dutt Tami Hull David Rathke Semra Sonmez-Camelo Laura Vazquez
Theodore H. Buchholz Maureen and Rob Morrell
Ruby Carrington Susan Emery
John Lee Coffee Jr. Rebecca Coffee
Robert Cuthrell Jackie James
Charles Edward Davis Helen Mott Florence and Walter Shackelford
Stephen Doyle Nancy Bush
William Fifer Jackie and Eric Romanos
Judith A. Fisher Judith and Lawrence Bender Joan and James Burke
www.autismsociety-nc.org â€˘ 29
Harvey Lee Joyner
A Growing Community: Implications for Our State Richard Clancy
Jean and James Wilson
Diane and Bartley Conlon
Karen Croteau and Robert Dacey Joyce and Kenneth Dierks
Regina and Lawrence Donovan
Rachel and Barry Friedman
Terri and Joey Joyner
Michael R. Katz
Anita and Robert Lucero
Miller Nelson Crystal and James Oden Sharon and Wade Reynolds Marita and Aaron Rogers Pallas and Louis Teer Jason Teeter Karen and John Watts
Shelba Jean Cannon Gooding By David Laxton Christine and Kevin Doran Mark Arthur Ownbey Eurline Martin Stephanie Doucette
HUGG Group of Temple Baptist Church
Mary and Raymond Dowling
Annella Howlett and Michael Lewis
Teresa and Ty Espy
Jane and William Farynaz Joan and Thomas Graney
Laurie and Paul Hartenstein Traci Hefner Mandy Hinze Demarius Hooks Wendy and Brent Horten Natalie Hubert Lucille and John Kennedy Janet and George Malits Bridget Mulholland Linda and Wayne Prowell
Lucy and Fred Johnson
Mr. and Mrs. Lexton Keeter
First Advent Christian Church
Eugene Bobbitt McBride Jr.
Piedmont Advantage Credit Union
Gloria and Gerald Otis
John J. McGovern
P. E. Latham
Callie and Paul Miller
Shirley and Thomas Ray Sandra and Edward Reeves
Ann Caiati Pena
Mr. and Mrs. J. D. Langston
Patrice and Thomas Galvin
Jeanne McGovern and Michael Schwenk
Katherine and Robert McFarlane
Sara Handlan Jamezetta and Edward Bedford
James Hess LORD Corporation
Daniel Hibbitts Julia Price Scott
Dwayne Eric Holder Wendy Whitt
William J. Honohan
Linda and Henry Raxter
Home Care of the Carolinas
Jeanette and Ned Huneycutt
Deborah Earnhardt Meredith Albemarle Assembly No. 32 Shannon and Michael Chang Wanda and Jeff Curley Alan Duncan Amelia and Albert Earnhardt Denise and Dwane Earnhardt Nancy and Albert Earnhardt Kay Fiske Margaret Franklin Mr. and Mrs. Robert Gfeller Lisa and William McCutcheon Gayle and Wayne Meredith Beverly and Alan Moore
Lisa Morgan Clover High School
Wellon Clark Morrison Jackie Bost Eudy Kathy and Timothy Pigg
Steve V. Naylor Accel Foundation Archwood Building Company Landvision Designs, Inc. Barbara and Mike Anderson Brian Atkisson
Triangle Indian-American Physicians Society
CHARITY GOLF TOURNAMENT & GALA
Mary and James Cain Judith Calhoun
This fall in the Triangle http://bit.ly/TIPSgolf20155
Patricia McKeon Margaretta and Donald O'Shea Mr. and Mrs. Fred Seufert Yvonne Simpson Ellen Smith
Patricia Tant Pollard Linda and Brad Griffin
Emily Popkin Linda and Brad Griffin
Arlene Price Randall Hinds
Joan Regan Clare Hall
William Porter Sing Jr. Sally Combs
Jim Tobin Providence Country Club and Heathens Golf Group
Vicki Bethine Tompkins Reggie DeLiesseline JoAnn Mirabito Terri Savago Sherry and Ray Tompkins
Joseph R Torrisi Jr Dave Brown Lisa Glover
Tom C. Vaughn Jr. Maria and Jeff Messer
Avda and Robert Bartsch
Diane and Fred Feldmeier
Sharon and Ricky Eddins
Janet and Alan Harrelson
Sue and Narvil Gill
Virginia and William Seitz
Beryl and John Greene Donna and John Hunter Harriet and Alec Jablonover
30 â€˘ The Spectrum, Winter 2015
Melissa and David Jessen Donna and Bill Judd Juanita and Lanny Luchenbill Judi and Howard Margulies
Ronnie Clyde Williams Eastern Alliance Insurance Company Donna and W. Bryan Bigham Carol and Michael Willeford
Call on us!
The Autism Society of North Carolina (ASNC) is the leading statewide resource organization serving people across the autism spectrum throughout their lifespans. We understand the challenges of the autism community because we work with individuals on the autism spectrum and their families every day. We offer advocacy, training and education, and direct care. We have a statewide network of resources, connecting individuals with autism and their families to life-changing programs and supports unavailable anywhere else. Autism Resource Specialists connect families to resources and provide training to help you become your child’s best advocate. As parents of children with autism themselves, they understand your concerns. Find yours: http://bit.ly/AutismResourceSpecialists Workshops with our Autism Resource Specialists are quick, easy ways to learn more about topics that concern you, such as IEPs, transitioning, and residential options. Our Clinical trainers provide comprehensive sessions for professionals and caregivers on topics such as preventing challenging behaviors and functional communication. See the complete schedule: http://bit.ly/ASNCWorkshopCalendar Online resources, including IEP toolkits and a Safe in the Community section, provide opportunities to learn on your own time from your home. www.autismsociety-nc.org Chapters and Support Groups around NC provide a place for families who face similar challenges to feel welcomed and understood as they offer each other encouragement. Find one near you: http://bit.ly/ASNCChapters Direct care services provide children and adults with autism the skills to increase self-sufficiency and participate in the community in a meaningful way. ASNC’s direct care options across the state include skill building in areas such as personal care, communication, socialization, and community integration; family consultation; afterschool programs; respite; adult day programs; and social skills groups for adults and teenagers. Services are provided through the NC Innovations Waiver, state funding, B3, and private pay. Contact us to learn which services are available in your region.
Behavior consultations with our licensed psychologists and Board Certified Behavior Analysts can help explain why behaviors are occurring, develop comprehensive behavior plans to promote skill acquisition, and coach caregivers and professionals on effective strategies. http://bit.ly/ASNCConsultationServices Employment Supports helps individuals with autism explore their skills and interests, then assists them in finding, keeping, and thriving in a job. Services are funded through the state Division of Vocational Rehabilitation. http://bit.ly/ASNCEmploymentSupports Camp Royall is the nation’s oldest and largest camp for individuals with autism. Located near Pittsboro, Camp Royall serves all ages and offers year-round programming. www.camproyall.org The ASNC Bookstore is your one-stop shop for quality autism books and materials selected by our experienced staff. The bookstore employs adults with Autism Spectrum Disorder, and all proceeds benefit ASNC. www.autismbookstore.com ASNC’s public policy efforts aim to advocate for the needs of individuals with autism and their families by working with the executive and legislative branches of state government, the Department of Health and Human Services, and managed-care organizations. You can get involved and make your voice heard. Subscribe to legislative updates: http://bit.ly/ASNCPolicyPulseSubscribe Connect with us: Sign up to receive our monthly email newsletters and twice-yearly magazine or follow us on our social media channels. http://bit.ly/ASNCStayInformed
autismsociety-nc.org We have regional offices in Asheville, Charlotte, Fayetteville, Greensboro, Greenville, and Raleigh. Contact our state office to be connected to resources.
ASNC State Office
800-442-2762 505 Oberlin Road, Suite 230 Raleigh, NC 27605-1345
Non-Profit Org. U.S. Postage
505 Oberlin Road, Suite 230 Raleigh, NC 27605-1345
Raleigh, NC Permit No. 2169
Stepping out to improve lives.
Run/Walk for Autism Asheville
Run/Walk for Autism
for Autism 10 Run/Walk Raleigh
Run | Walk | Create a Team | Donate | Sponsor
www.RunWalkforAutism.com Autism Awareness Game at UNC September 12 | 6pm | UNC vs. NC A&T
For tickets at a special $10 rate, visit www.GoHeels.com/tickets, click “PROMOTIONS,” and enter “FB15-ASNC.” Thank you to our sponsor again this year!