October 1995 Edition - Access Press

"Giveto every human being every right that you claimfor yoursel$

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Faith Healing -p. 4 Letters -p.9.

October 10, 1995

RESOURCES

We Can Stox, The Cuts!

1Momentum Is Building - Time To Act Is Now I

"We'regoingto fight, with your help."

ocial Security andMedicare

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win this!" &.=

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come from, with six and sev-

people. This is working fam.

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are, are going to amble along and loaves and fishes, ym're not

Town Meeting Testimony

Faith Healing -p. 4 Letters -p.9.

pafume 6, Number 10

"Giveto every human being every right that you claimfor yoursel$ Robert Ingersoll

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We Can Stop The Cuts!

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Momentum Is Building - Time To Act Is Now "We're going to fight, with your help."

Speech by Bruce Vento at the Medicare-Medicaid Town Meeting :

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issues and the proble

"We're not done - we're going to

win this!,'' "peech by Paul Wellstone at the Medicare-Medicaid Town Meeting

1 want to talk about the poli- The second problem is trying ers and assuming that if you pias first, then empowerment.

On the Medicare front, it is at best disingenuous or a little misleading to keep talking about feosofarateofincrease, because it all has to do with how many people in the year 2002 will be over 65 and over 85.

The fact of the matter is, we are seeing in our country an explosion in the number of people that are living to be 65 and, forthatmatter, 85. Sothe only way you can look at Medicare istolookatwhether or not there will be the availability of services for people and whether or not there will be quality care for people considering how many people are 65 years or over. That's the problem. The $270 billion, the $4.5 billion ofcutsjust for Minnesota, isagiganticproblem for elderly people and for our caregivers as well. It simply won't work.

Third, it's a little bit hard to accept, because as long as you are going to make $245 billion in tax cuts, mainly going to high income or wealthier people, all of us wonder why you're cutting Medicare and Medicaid so much. It just doesn't make sense.

use a managed care plan it costs you less than fee for services, is a bit outrageous.

Thiswholeideaofprivatizing and going to vouchers, if the health care costs continue to explode (and I don't see anywhere in this plan have, that they are asking insurance companiesor pharmaceutical companies or any of those other people to be a part of tightening the belt), then the individual people with the vouchersaregoingtogetstuck with the additional cost, and a lot of elderly people aren't wealthy. Asamatteroffact, if you wanted to reform Medicare you would have systemwide cost containment and you would make the providers live with a budget. You know what else you'd do?

You would include prescription drugcosts. That'sthe big hole right now. For a whole lot of people, that's the big

This whole notion of vouch-

Wellstone - cant. on p. 2

to balance this budget on the backs of Medicare recipients and having health care cost containment but only focussing on Medicaid and Medicare,not systemwidecostcontainment.

We don't know all the specifics of the plan as yet, but this whole business of the trust fund is verymisleading,since most of the cuts are in Part B which has nothing to do with the trust fund. Part B is not out ofthe trust fund, it's out of general revenue and out of what people pay themselves.

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of o m another. When you come from families like I federal spending and W s m e fram, with six and sev. something all of want 8 s&' a de i @ d ten children, .h+.

They put forth a bill, them&awhytktpyparents, !blueprint, in the House and Sa* that requires massive cuts and it's -dd by the k t thM they we gchg to in to Social Security, give g-us trm b d t s to into Medicare, and we can s o m e m e m h a f o u r ~ . help d empower our parEverybodywants atax bt&, ents and others in our family It doesn't take m y profile in (and I have brothers and siscouragetovote forataxbreak. ters whohavedisabilities),so But remember, the other errd they can havetheirnedmet of that is that somebody else in an orderly way, that they is going to have to pay more.

Ikewithssm&h&called Ifyou giveatax break on one &wily. side, somebody's going to bave to pay more on the other That is very, very important or you have to substantially in terms of how we deal soreduce importam programs. cially and how we come forward together as a society and NDW,@& past month we ml- rts a broader social Gmily. ebraied the 60th Anniversary It's the way we are organlad of the social Security pro- as a smiety. Of course, you gram. Earlier in 'August we cannot take $270 billion out celebrated the 30th anniver- of Medicare in seven years. sary ofMedicare. Those two You cannot take $183 billion pmgram~taken together, and outofMedicaidin&ven years the Medicaid program, the andsuggestthattheprograms s of Medicare, are going to amble along and I to eliminate that nobody is going to be pow- and tt, h m a s e or impacted. They ate. Taking

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peow. 'Ilifi"yswbrkbig fiun-

ilies,peoplethatpunchatimeclock and they don't have health insurance! When they haveserious health needs that arkq and of course they have

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icakkby nearly 1.3 million a year. So a private health insurance k a m e s more expensive and as there are no alternatives, people and emdoyers drop out. They can't get the health insurance and it's Medicaid, then, that provides that.

It's estimated, based on this particular numbe?; that nine million individuals will not meive Medimidbasedon the types of cuts that are anticipated. And yet we have governors and others that are saying just give us flexibility.

Well, unless flexibility translates into the miracle of the loaves and fishes, you're not going to fund these types of Vefib cwt. on p. 5

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October 10,1995

The Board of Directors of the Conference Room in Suite 10, 200 1 (TTY).

1600University AvenueWest Metropolitan Center for

The legislaturewas pursuaded last session by disability advocates'to delay the planned $13 million cuts in the state budget For Personal Care Attendants (PCA) until July 1996. The dxocates asked the legisla-

more meetings before making their recommendation to the steering committee. So, there will be somewhat more input froln consumers, but still not enough to makc a real difference.

curate information last spring concerning costs in 1994.

If DHS cannot supply the task force or the legislature with accurate numbers, then the questionarises: areany oftheir

istigs Available On QY ,

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-hour TTY job hot line. Hennepin's continuing effort law enforcement, custodial,

save the money. The Home Care Task Force was to be formed by DHS, and was instructed to bring back their recommendationstothe legis'ature in October of this year.

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give educated guesses on expected costs or savings.

For example: One of the suggestions recommended\by the Minnesota Consortium for Citizens with Disabilities (CCD) was haveacare~lan assessment done On people with every their cOndiye= changed)7instead evyear, as is now requ'red.

This seemed to be a straightforward, sensible way to save some money. DHS officials say they can't evaluate the possiblesavings because they don*t know how much these evaluations presently cost.

They say this is due to a deficiency in their computer systern. They admit that they could not give legislators ac-

WE LLSTONE

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ers and, you know, go out and purchase your own insurance.

Elderly people and a lot of On the managed care plans, I others? Do they think insurDHS requested applications have to smile. They do a little ante companies are interested from concerned in bit better with people that are in providing the coverage? appoint peaJune, but did younger and healthier. They There's somethingcalled prepie August. The task haven't done sowell with 0th- existing conditions, for God's was faced with an er parts ofthe population, and sake! I mean it's getting to the mousjob' and now only had a while there is good managed point with the insurance comcouple of months to do it. care, the fact of the matter is panies that you have to prove There have been charges by that all too often there's too you'll never use it to obtain it. the disability community that much gatekeeping and we DHS did not appoint enough can't count on it. Not without On Medicaid, my big concern consumersto key sub-comittee.. DHS responded by apsome strong due process and is that we'retalkingabout $2.7 some strong consumer pro- billion in cuts in our state. 1 pointing more consumers -fo committees.

The problem is fectionwant to make two points; a Whatever fraud there is, great, that it is too late in the process; most of the sub-committees I don't know where thesepeo- let's eliminate it. But let's not ple live! Like,takethevouch- mislead people. There is not only have one, or at best two, I $2.7 billion offraud in Minne.* sota in Medicaid. Th'ereis not $4.5 billion in fraud in MediPublisher .............................................................................................................

Wm. A. Smith, Jr. care, and by the way, our state .. . .

Editor Charles F.Smith Cartoonist Scott Adams has already keptthe costs way .. Production Presentation Images, Ellen Oestreicher down. What I about, - .

Staff Writer & Editorial Assistant Jeff Nygaard ACCESS PRESS is a monthly tabloid newspaper published forpersonswith disabilities by Polychrome, Ltd.. W.A. Smith. Jr.. Pres~dent.Circulation is 10.000. distributed the I W of each month throueh more t h a n 120 locations sktewide. Ap roximately 650 copies are mailed directly to political, bkiness, B E m institutional and civic leaders. ~ugscri~tions are available for Sl21yr. cost and the big problem, but there's none of that here.

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Editorial submissions and news releases on topics of interest to persons with disabilities, or persons serving those with disabilities, are welcomed.

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Paid advertising is available at rates ranging fmm $1 1 to $15/column inch, depending on size and frequency. Classified ads are $7.00, plus 20 centdword over 20 words.

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Advertising and editorial deadlines are the 30th of the month preceding publication; special scheduling available for camera-ready art.

Inquiries should be directed to: ACCESS PRESS 3349 University Ave. S.E. Minnesota 55414 (612) 379-0989 Fax (612) 379-2730

Minneapolis,

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whether it be cutting TEFRA or other waivers, is it's the worst possible thing we could do. My fear is that there will have to be such draconian cuts in terms of how the state then makes up forthis shortfall that we're going to see US moving away from the key kind of investment that enables peopleto live at home with dignity in as near normal circumstances as possible. We shouldn't let that happen, not in Minnesota, not anywhere in the United States.

big reconciliation bill at the end which President 'Clinton has said he would veto -he better P Then the question is where will there be a compromise . and will it be a reasonable compromise and will it be one that connects toour lives. You know what? All that depends on what we do! Depends on the letters to the editor, depends on calling in to the callin shows, depends on how many people are on those shows. It depends upon hav- ing another meeting. This is not the last meeting, we don't, _ have everybody in the delega-- .r tion here. Depends on your strength. . .- -

My final point is, when I think of the disability community, I havenevermet agroupofpeople who are more determined and know what it means to . beat the odds. I don't want to hear that there is we not done, we;re going , -. ; :.,I can do. That's not true. A lot to win this! b; > - . --. ofthis get

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SPEclALlzED TRANSPORTATION

October 10,1995

Access Press

Metro Mobility Service Hours And Fares Change Beginning October 1, 1995, Metro Mobility service hours were reduced in a number of communities around the region as part of the Metropolitan Council's effort to close a $5.7 million deficit in the program's budget. The changes were approved by the Council earlier this summer.

In the communities where changes have occurred, early morning and late night service hours have been trimmed so that Metro Mobility will operate from 6 am through either 7 pm or 11 pm. Riders with standing orders which are affected by the changes were contacted directly by Metro Mobility Service Center.

The Americans with Disabilities Act (ADA) requires the Council to provide paratransit service which is comparable

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/Holrnes Park Made Accessible

to the regular route system, including fares, service hours andservicearea. Thesechangesarewithinthescoperequired by the ADA.

Mendota Heights, Mounds View, New Brighton, North Oaks, Oakdale, Osseo, Plymouth, Shoreview, Shorewood, Tonka Bay, Vadnais Heights, White Bear Lake, New Metro Mobility Service White Bear towns hi^. hours are: Woodbury, Woodland.

6 am to 11 pm Anoka, Blaine, Coon Rapids, 5 am to 1 am (no change): Eagan, Eden Prairie, Edina, Bloomington, Brooklyn CenFalcon Heights, Fridley, Gold- ter, Brooklyn Park, Columbia en Valley, Lauderdale, Heights, Crystal, Hilltop, Minnetonka, Minnetonka Hopkins,Maplewood, MinneBeach, Mound, New Hope, apolis, Richfield, Robbinsdale, North St. Paul, Orono, St. Louis Park, St. Paul, South Roseville, St. Anthony, Spring St. Paul, West St. Paul.

Lake Park, Spring Park, Way zata.

Fare increases for Metro Mobility will go into effect on 6 am to 7 pm: November I st. One-way fares Arden Hills, Champlin, will increaseby 30 cents, bringDeephaven, Excelsior, Gem ing peak travel fares up to Lake, Greenwood, Lilydale, $2.50, and off-peak fares to Little Canada, Long Lake, $2.00.

Mahtomedi, Maple Grove, Medicine Lake, Mendota,

Efforts of the Marcy-Holmes Neighborhood Association and hnding by the Neighborhood Revitalization Program have given Holmes Park a facelift and students at Marcy Open School a new playground. The rehrbished park was dedicated on Thursday, September 21st.

The neighborhood received a $10,000 Community Initiatives Program (CIP) grant to improve the accessibility of the park for children and adults with disabilities. Holmes Greenway Apartments, an independent living environment forpersons with disabilities,is located one block from the

park. The refurbished park includes an accessible entrance, walkways, and freestanding pads that provide access to playground equipment.

The new park benches and checkerboard game table are also accessible by wheelchair.

1 wheelchair Square Dancing "The Perfect Squares," a wheelchair squaredance club, is starting its fall season on Monday, October 16, 1995.

They welcome people whoare able to maneuver their wheel-

chairs well (electric or manual). If you are interested in becoming a new member or if you would like the club to perform at your special event, pleasecall Sheilaat 379-472 1.

The perfect ~~uaresmeetmost Monday evenings at Courage Center, 3915 Golden Valley Road inGolden Valley. Please call to confirm.

Voices Hosts "Post-Halloween Party" O n Wednesday, November Ist, from 7 until 9 pm, Voices for Disability Rights will host a "post-Halloween" costume party. Come dressed as your favorite political personality, past or present, and enjoy an evening of music. refresh-

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ments, and fun! Prizes will be ty Avenue in St. Paul (at the given for the best costumes. corner of University and Snelling). If you need an inThe party will be held at the terpreter in order to particiMetropolitan Center for Inde- pate,contactCarolyn Emerson pendent Living conference at 603-2015. room, Suite 10 in the Spruce Tree Centre at 1600 Universi-

Volunteer For Hennepin Co TheHennepinCounty Department of Economic Assistance offers a variety of different volunteer opportunities for persons with disabilities.

number of positions working independently or with staff.

Some positions offer the potential ofworking from home making telephone reminder

from giving. If you are interested in learning more about volunteering please call Hennepin County Economic Assistance Volunteer Servic-

Energy Assistance Cuts Hit

Voices For Disability ' ' '-\ts Elects 0fficers Tneresults or tne elections of officers for Voices for Disability Rights have been determined, and the results appear below. Anyone interested in contributing their input to any of the committees can contact Deb Peterson at 227-027 1 andlor attend a board meeting.

Board meetings are held the 2nd Wednesday of each month at the Spruce Tree Center, 1600 University Avenue W., St. Paul, in the Metropolitan Center for Independent Living's new conference room (Suite #I 0).

~innea~olis

The Low-Income Household Energy Assistance Program' (L1HEAP)may becut asmuch as 50 percent, affecting lowCorrespondence secretary ............K~~ stall incomeMinneapolisresidents who count on energy assistance to help pay a portion of Standing Committees their fie1 bill. The national budget for LIHEAP was $1.3 Public Relations Chairperson: Deb Peterson .................................

227-027 1 billion in FY 1994-95. The current House budget provides Legislative Chairperson: Lisa Baron ..................................... 378-0 120 no funding in FY 1995-96, and the Senate budget proEndorsement Chairperson: Scott Dehn ....................................

578-0120 vides only $750 millio Program Chairperson: Dorothy Balen 831-1932 v.

1995-96 Board of Directors Officers Persons interested in working on any of the hairperson ......................Carolyn Emerson abovecommittees should contact thechairice Chairperson ..................Dorothy Balen person of the Committee. We need you to .easurer ...............................James Carlisle help us in the upcoming year. ecording Secretary ................... Lisa Baron

Traveling Library 'thenew Minneapolis Public ibrary Bookmobile could mlk, it might say "Take me to your reader." Beginning October 16, that's just what the liny new "traveling library" will do - take books and other library materials to more than thirty Minneapolis neighbor~oodsonaregularschedule of

er materials. It will visit high riseresidences,daycares,community centers, and other locations that serve people who may not have easy access to one ofthe fourteen community libraries in Minneapolis. It will be equipped with a wheelchair lift and can accommodate about 5- 10 visitors at a time, plus two staff people.

O\IRP)grant from the Whittier AllianceNeighborhoodAssociation. Additional funds for bookswill beprovidedthrough the Prospect Park NRP plan.

Thesetwoneighborhoodswill be visited weekly; other areas will have bimonthly ormonthly stops.

The Bookmobile will have magazines, audiobooks, large ~boutthesizeofalargeschool The Bookmobile was pur- print books, and both hardbus, the Bookmobile will car- chased through a Neighbor- coverand paperback books for rahut 3,500 books and 0th- hood Revitalization Program Library - cont. on p. 12

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HAND1

"We will open our energy assistance offices on October 2 to take applications without knowing the amount of findingavailableorwhenitwillbe available." say s John McCauley, vice president, Community Action of Minneapolis. "Minnesota plans to addressthecutbacks for 199596 with ashorterprogram year (October March) and with the reduction of grants. Lowincome urban residents are

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particularly affected by energy costs due to the age and condition ofhousing stock. In Minneapolis, 79 percent of residential housing was built before 1950when weatherization and insulation of homes became relatively standardized."

For information on applying for energy assistance. call 3482255 on the North side and 348-481 1 on the South side.

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Access Press

Commissioner's Column

Religion & Disability

Make The Case of change l~houghtOn Faith Healing

by Hennepin County Commissioner Peter McLaughlin

by Cheri Register

in the process of positive message. change, Thefustwastheuntimelypass- trasted with the others and

. His actionsremain amodel message. r all ofwhat it takes to create

t

ical effects, which peddles the regenerating. Weight-bearing illusion that the mind can exercise has been shown to

nprofit working successful- itive story to me!

and awareness. It provided all County buildings for per-

did miracles happen o@ h -'imagineLouise Hay in a nurs- he points out, might not al-

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knowledge that "it is possible

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nem or despair. ~ t ' stime make the caw for change a

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It's Not

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Spaesrs: In&m Family Services

e paralysis might have been arranging the elements of the Cheri Register is tkaSCt&d psyche, who has the blueprint? "Livingwich Chronic I I b s : ;

. , Oct 17 - Carol and Sam Taylor of the African-American Lupus Foundation: m a t lack Women ~ e e t6 d

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A w e Henry of the Disability Law Center: Health care cuts

3 1 - People with disabilities aren't scaty. Or are we?

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Nov 7 - Justin Dart of Justice Far All

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N w 14 -Ellie Etnanuel: International Conference an Women in Beijing, China -John

Schatzlein: Sled Hockey

Nov 2%-Peggy Mann Rinehart: National Council on Youth with Disabilities

106.7 FM -St. Paul

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I do believe in miracles. I've see~~onejustthis month. Two years age, a friend of mine learned that his hip bone was deterioratine. He had a condition called avascularnecrosis, which was probably caused by ...guilt'?. ..no, long-term use

Available 24 haurs per day

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Days of Patien& a d L & i sion", a book based 0 p . h own experkme Wb ~ a r o i t q Syndrome a&#: twi i-ime with many sfber'@o~sa48@; invisiblechronric11I~a &54: can be reached at ~ -- .sL' 0485.

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Please patronize your Access Press Advertisers and tell them where you heard about them, rhey bring you your paper. I

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I Life Goes On

On Mental Illness

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October 10,1995

Hearing The Unheard Voices ISafety & Security

by Jeffrey Bugenstein I by Leanne Dahl Many years ago a teacher of mine once said that, of all the interpersonal communication skills, listening was the greatest skill one could develop.

Up until theonset ofmy illness I had thought that I had become quite a good listener.

All through my recovery I have been aware of how difficult at times it seemed to be to hear the voices and words of those with disabilities.

As a college student I leamed to listen with careful attention to the9'bland"lectures and discussions of professors as they discussed the obscure subject matter which was the object of study in a life-long pursuit of "academic excellence". 1have since come to see such intellectual delvings as a secondary consideration in my dayto-day dealings with life's many problems.

. Now that I can say I am recovering from mental illness, I have learned (as my Native American friends say)toL'think wifh my heart as well as my mind". And I have learned

that thinking in such a fashion brings me a greater understanding, in ways that the abstract and intellectual conversations of my college days never did.

Thinking in this new fashion, I have learned to expand my awareness of the needs ofpeople with special needs.

out generate a deep sense of alienation. Feeling as ifwe are not wanted, because accommodations for our needs are not met, creates an abiding sense of pessimism that pervades our involvement in the world around us. We feel set aside, stigmatizedandunwanted. The world seemsheartless Many of us who have special and cruel, and life sometimes needs do not think ofourselves seems senseless. as people with special needs.

We think of our needs as they Learning to "m~nkwith our present themselves in every- hearts" reminds us that we are day situations; for us they are all human beings. We all have a necessity, not an option. weaknesses and limitations; Quite often we find that we none of us are perfect. Reneed to explain to others what membering this, we can work those needs entail. Disagree- to create a world where misunment and misunderstandings derstandingand discrimination about $e difference between can be destroyed. With our wants and needs develop hearts, maybe we can learn to through poor communication. listen more effectively to the By not talking about our needs expression of the needs and as we understand them, or by the wants of others. being vague or unauthoritative about accommodations which Finally, when the voices ofthe are necessary to meet our unheard are recognized, and needs, tine lines of stigma ap- not until then, can we all share pear. Often we feel forgotten, in a world where diversity is ignored and misunderstood. recognized. A world full of diversity awaits us once we learn These feelings of being left to hear the unheard voices.

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After a long hot summer, I'd like to touch upon a subject that's a part of all our lives,disabled or not. The summer began with news reports of crimes of women being raped in Minneapolis, St. Paul and suburbs. Every morning there was some new development reported by the news media.

It frightened me, and I began wondering how other people felt. How does one take precautions, especially when one is more vulnerable? The fact is that those of us with disabilities cannot get away very fast from a perpetrator. While we have to take extra safety measures,we can't allow ourselves to become so a h i d to leave our homes that we become recluses. If we do, we will be more alone, which leads to isolation and none of us can afford to do that.

According to every article I have readon this subject, statistics prove that in most cases of women being accosted, the assailant has been someone the person knows. But, it's also -

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been stated that much of this turning the spray towards herhas to with domestic abuse. self. Like many of us with cerebral palsy, she wonders In discussingsafety issueswith how much help self-defense friends,I found some differing classes would be in view ofthe viewpoints. Not surprisingly, fact that we do tighten up, women feel more vylnerable which prevents us from movthan men. ACCESS PRESS ing quick enough to ward off editor Charlie Smith views the an attacker. This continues to chances of persons with dis- a big concern to many, includabilities being ro6bed as be- ing myself. ing relativelydow compared to the general public. He also The only suggestions I can feels that a lot depends on how offer are: 1) When out in pubone portrays himherself. For lic, keep your wits about you. instance, ifone looks and feels By this I mean don't act nerself-confident, they're less vous, act confident. 2) Go to likely to be taken advantage places that are in reasonably of. While I may agree with this well-lit areas and busy places. in theory, I feel in actuality 3) When you're at home, keep that when a person is face-to- doors locked. 4) Maybe conface with potential harm, sider putting in a security sysone's emotions kick in. No tem ifthat makes you feel safone knows how they're going er. 5) Be cautiousabout giving to react until it happens. out name and address over the phone. 6) Use common sense.

It's true, there are a lot of safety devices on the market and Perhaps these seem a bit exmany self-defense classes treme to you, but given the available. So how does onego climate of society today, isn't about choosing what's right it betterto useas many - preven. forthem?A womanthat I spoke tive measures as possible rathto said that she wouldn't cany er than be sony? Then mace because she fears that in WILL GO ON! her panic, she would end up -

with severe disabilities. So we're payihg for, to be there ,this on us in the middle of are part ofthis, you are part of here these families would be for those we mv about

away. Taking back citizens that have upper in- wiving those types of care going to have to fight for it

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DIRECT BlLUNQ MEDIGARE YEDlCAlD 6 OTHER IHBUIPANCE

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OSTOMY URINARY MANAGEMENT SING SUPPLY SPECIALISTS

The facts are chxtr for us to

to have that, ance company to date. In Fact

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October 10,1995

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Photogra. 'iy - y Mike Barich nesota Consortiumfor Citizens with Disabiluws (CCD) and the Senior Federation asked the Minnesota Congressional Delegation to a Town Meeting to discuss the proposed cuts in Medicare and Medicaid Senator Paul Wellstoneand RepresentativeBruce Ventowere the only members to attend Representatives Martin Sabo and David Minge sent aides and Rep. James Ramstad sent a letter.

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A roomful of citizens tesa$ikd about the effects theproposed cuts may have on

their future. The following are excerpts and pictures are from the Town Meeting.

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Statement by Louis Moore, gepresenting Congressman Martin Sabo

has brought up to each of the fice for. If we can get people groups he has met in his ofice to rally around this issue, if we So there has to be this is that he wants to make sure can get people to fully under- move, this bigmovement.

make sure the conserv

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Gloria Steinbring, Treasurer i f Advocating - -. .

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From Minnesota*sperspective we have somevery strongconcerns about how these cuts will impact the disabled community.

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Many people do not understand the Medicaid program which has not been publicly discussed,aspeople have been talking about Medicare. But let's talk about Medicaid for a minute:

people with disabilities and serious chronic illnesses who

The governor of Minnesota When demolition experts cuts in the personal care attenthat these types of plans can work before we force people

priate. We do not blow up buildings kith the people in Quite fi-ankly, too many peo- ance?" Not one single person ple dink the Medical Assis- raised a hand. tance program is for a bunch

stricted to the provision of the the managed care programs to

OF THE WEEK

I'm not worried about being in anursing home.

I'm a mother of a son who hrJ alwayswereeventuallyforced My biggest concern is for ev- cause I will die hying to survive out on the oxygen and is mildly retmkd out by rent increases. In three and right now he lives in a years, when he lived w l me, waivered site. My gratest we went through six different fear as a single parent is, that living arrangements. if this service is discontinued I'll need totakethis onehome. We really aren't able to take Living in a rental proper&sit- care of his needs at home. uation. r had him home until Without having a 24 hour staff he was seven, and when we available I don't see how I were living in apartments we could take care of him.

ery other family who has chil&en that require a lot of care.

What would happen to us and Om chi'dren? What evenlually as we age and aren't around to take care of them? Where would they end up?

swwtorda by my own hmd I everenter anursinghomemAm kindofanurl What aboutPatrickHenry who said, like a man than to live like a dog." William Wallace. "They may take our lives, they may never take our freedom.,, That's where it is. We want to live. We want to live free. The only way we can do it in this country is on Medicaid.

Sharon Hardy

Barbara Knowlen

I've got my own business and the only way I got up this morning and did a few things you guys take forgrantedwe won'tmention here is becauseI've got an attendant thatdid that for me. Now I'm up for the day. I'm being productive. If that guy didn't get me up this moming I wouldn't be here. It's that simple. 1wouldn't be able to work and I wouldn't be able to go to school and I wouldn't be able to live h e and I wouldn't be able to be here today to participate in m] community and neither would all the rest of us.

I g u k I'm one of the lucky - people in this mom. I have Medicare as well as an HMO through my husband, who also has a disability. I'm very fearful for the rest ofthis community that there won'tbeenough mom in nursing homes iMedicaid is not given to people who need it. I actually need Medicaid because I need attendant care but do not qualify for it because ofmy husband's income. But still, I am one of the lucky individuals. At least I do have an attendant. I have an attendant that's worn out, because he works fulltime and

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We would rather spendtime goingtoschool, working fora living. I'd love to work at my busines!

J: he does my attendant care.

My concern is, immediately, whewill lose everything they have at this point. AS Leah says, weare indeedgoingback-

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. more instead of being involved in meetings and civil disobedience and writing letters and

1 Sclratz

wards. It almost makes the Americans with Disabilities Act seem out of step with what'sgoingonnow. Thetwo do not gel together. Our society is definitely going back-

everything else and sending faxes.

Truly, folks. Can we get something sensible done that takes into account that we are citizens ofthis country and we have the sameright to personal freedom that every other American citizen does? And we" not going to sacrificethat freedom so that some guy in Eden Prairie gets a tax wards. People with disabilities are k i n g very devalued.

C h n l y t h a t is not part ofthe Amwith Disabilities ~ct.

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I urge you to keep up the fight, as 1 will, to m e pope disabilities equal citizens in this state and in this country. I thank you.

Cortt..nues

More on page 9

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October 10,1995

Access press

The Power Of To:

by Gordon Gillesby

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The world is waking up to computer technology in a big way. And they're waking up to the power of communication through, with and by computers in an even bigger way. Not bad, consideringit'sonlytaken fortyyears or SO.

donations. Even more important to us, we received many calls fiom people with disabilities and caregivers needing our refurbished computer equipment. People at risk of being left behind in the burgeoning technology age. People with lives not only improved by computers sometimes, they are even saved by them. People from all over the region; both children and adults living in "at-risk" situations: people with disabilities, people in racial minorities, people under-educated and chronically under-employed.

Now that it's happening, some people are helping out in a big way, too.

Like the folks at WBOB FM 100.3 in Minneapolis. With a flair for modem country music, they also have something they like to call the BOB Foundatiort Each month they select a local charity (although, many of us prefer the term non-profit) to pro- To be fair, WBOB is not the only mote over'the airways as the BOB media form to take an interest in Charity of the Month. people with disabilitiesor DRAGnet.

Of course, there's Access Press.

October's selection is DRAGnet and WCCO television did -a story on it's computer recycling project DRAGnet in August as did Public RE+PC. In addition to a thousapd Radio in Duluth and Rochester. dollar grant, we'll get over 300 pub- KARP in Glencoe/Hutchinsondid a lic service announcements over the radio interview with us last month. course of the month and be included KFAI, KTCZ, KCFE and WCAL in their monthly broadcast fax. These have all run their own public service people know how to communicate. announcements a various times duringthe year. I'm surethere are others In the very first day of WBOB PSAs, as well.

DRAGnet had over a dozen telephone calls with equipment and cash There are, at least, two good reasons

for their interest. Surprisingly, it isn't about ratings or "feel-good" stuff that we might normally associate with media motives. Mostly, it's because people are genuinely concerned about the welfiue of their community. That's one reason. The other is because people thiik it's really, really neat that all this ''junk" can still be put to use to help people who need it. And that there's someone capable of doing the job properly. Oops. That's three reasons. Aw, shucks.....

It's said that in the dawn of human history, all people spoke the same language. Then somethinghappened to confuse it or them so that a multitude of languages, dialects and communication forms subsequently evolved. This confusion has caused the repeated fragmenting of human populations into smaller and smaller segments, each more isolated and more hostile than it's predecessor.

This, in turn, has caused wars and famines, along with economic tempests and' social injustice beyond imagining. Untold millions have suffered and, too often, died prematurely as a result.

Computers are much more than business tools for corporations and govepments. They represent the most potent force for breaking down barriers to human communication. They are a way of building stronger communities preserving their individual, unique heritage while inter-connecting with other human populations around the globe. They are tools allowing the blind to see, the deaf to hear and the isolated to find companionship and comfort.

In other words, we solve a technology access problem and a waste management problem at the same time.

Perhaps -given time and access to technology -we can find a way to heal all the planet's wounds and break down enough barriers so that we might, once again, be able to talk freely to anyone, anywhere about anything. Anyway, it's a beginning.

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Having Computers means Having Choices.

The crux of all this potential is getting low-cost computer technology into the hands of people who otherwise cannot afford it. Defining the Turn your Knob to BOB - WBOB problem is relatively easy. Creating FM 100.3 -Gordon Gillesby is the a long-term solution is difficult.

CEO of DRAGnet -the Disability Resources, Aflliates and Groups DRAGnet's RE+PC recycling is one network (612.338.2535/voice; comprehensive solution providing a 338.2569Yar). The Power of To: is sustainable way of generating low- about computers, cyberspace and cost refurbished computers and plat- communicationfor allpeople. Please ing them - with technical support share your thoughts, comments and -into those "at-risk" communities. ideas about this column with Access We fmd and repair computers, teach Press or log.on to DRAGnet Infortechnology-based education, em- mation Service with your computer ployment and independent living and modem (612.753.1943; 8-n-1; skills and directly provide jok.

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October 10,1995

Access Press

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--Testimony(cant. from pgs 6 & 7) Anita

Boucher, Director of Public Affairs, Courage Center

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John Walsh, Executive Director MClL People with disabilities are unbelievably fearful about managed care. They have a reason to be. It doesn't work for them. The people who run managed care do not understand the needs ofpeople with disabilities. It will not work.

Hennepin County, a progressive county, one of the most progressive counties in the whole country, tried managed care for people with disabilities in 1980. Less than a year went past and the county said, "Take it away -Take it away -we can't handle it!''

Because people with disabilities don't fit into managed care, the system they are designing will not work; we guarantee it!

People with chronic conditions have a great need for assistance; it's not their fault, it's just a fact. That's the way it is.

The country hqaresponsibility to help those people.

John Walsh

who understands Medical Assistance or tries to use Medical Assistance knows how difficult and unbelievable it is. In our organizationwe try to help people to understand Medical Assistance. It's an impossible job. SimplifL the rules, simpliQ the eligibility, and people will know the rules of the game. When that happens there will be fewer bureaucrats in the system. They're the ones who are kicking people offthesystem becausethese I can tell you what will happen rules don't needto be this way. if the block grant approach It's not working now, simplitjr comes to Minnesota. It was it please! triedjust this past year. Governor Carlson said, "Let's cut There's a larger theme that's the children". &pb in this overlaying this discussion. and hundreds of others And that is, that people with "It ain't gonna happen, disabilitieshave no value. I'm

such a convoluted system. We can't understand it, we can't operate under it. It's just unbelievable. If the general population knew the tenacity and the commitment that people with disabilities have, they would stand in praise of every person that has to live with a disability. I have so many friends whom I respect a great deal and they just live life, they know what it means to work, they know what it means to budget money because they have none, they know what it means to contributetothe community because they're out there every day. They're not getting paid for it because no one values their time. They don't care about 'em. And if you cut back on health care

or Carlson , we'll keep the ". WhatGovernor Carlson also did was cut the children anyway. We didn't do a very good job of selling the state - he did it anyway, folks. TEFRA7s there, but thekids aren't eligible after January I st of 19%.

Does the world know that?

No! Governor Carlson is tao i bamed to tell people that.

you're sending another message -just stay at home. We don't care, there's a nursing home down the street., Ruk there for the rest a f y m life.

We Wt..qw$ b see you, You're &I phg to contrii ~ l t e , ~ r e m & g o i f l ibe ~ hart to of our community. The message we need to give to you is - NO! It's not going to happen, we are an important part ofthe community and you are going to hear us from now to the end of the world!

W e at Courage Center are extremely concerned about the devastating effect that the potential cuts in Medicare and Medicaid will have on the children and adults with disabilities that we serve.

It's important to realize that people with disabilities are not using Medicare and Medicaid just because they feel like it.

It's because that's really the only choice they have to get their health care needs met. I think we'll hear a lot of examplesofthat here today. Private insurance is no answer. People just lose it completely or oftentimes private insurance companies will take people with disabilities,but place such limitationsonthe coverage that people are still not able to get what they need, and so they have to fall back on Medicaid in order to be independent and stay healthy.

both the federal and state levels, managed care has been held out as a panacea that going to allow us to save costs without harming anyone. We actually do believe there are new models of managed care that can be developed that might be able to insure that people with disabilities' needs are met. But those models are in their infancy. We're working with health plans and, obviously, in the disability community, and people in state government, to try and create some of those new models.

But time is needed in order to

Until we reform the private health care sector, the public programs rnustberetained. ~t

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You can save money by simplifying the system. Anyone I'm tired of it. You've got

There are probably a lot of changes that can be made to streamlineMedicare amj Medicaid but, again, time is needed to make sure that's done in a way that is really cost eficient and will insure that no one is harmed. Thank you very much for being here today and we appreciate your efforts and encourage you to keep up the fight.

Moderator Tom Brick, Anita Boueher, Jeff Bangsberg

LeAnne Dahl M y remarks are similar to what you've all been hearing. I echo Leah and Sharon. I speak fnr all people with disabilities, but I also speak for my husband and myself.

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Clinton has made this statement as well as our own Governor Carlson. And that is, "Every able-bodied person will work." Well, I da@ disagree with that, but what happens to the millions of people with disabilitieswf o are capable, want to work, want t o m tribute idthe community a d to society. You're giving a subliminal and direct message -WE EXPECT NOTHING FROM YOU!

do that right and we can't dismantle the system before we develop those new ways of providing care.

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able to work anymore and my mother is in a nursing home. So I have three areas that concern me. And I'm scared. I'm scared for my mother and ifthe money runsout in my case. I'm afraid far both of us if things turn b a d M ahere are n o f ~ m i p ov&&le. w .A-,+

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v m so thankful to ~ o that d w k able, d thb point in our lives, totake care ofourselves. But not a day goes by h t I don't think of other people and what's going to happen if Cangiess makes the cuts they are thinking about making.

I urge you to keep up the fight. I know we all will do the same.

Larry Dahl

Leah Welch

I think that ifthere should be any cuts it should

1 share Gloria Steinbring's concerns. I am scared, too. I didn't realize I was this scared, not be on h u d and bill-padding that goes into

just for myseIf, but for anybody, and the emotional impact it will have on people. It's Medicare and ~edicaid.I think that the help de.vastating, and I don't seehow they can even considersuch an option. This brings us way back, that would be required todo this would well pay @:the times of the Greeks and the Spartans. They threw a crippled baby away because they for itself, weren't useful, and that's exactly what they're trying to do to us and I will fight with what might I have against it a d I know the rest of us will. Thank you.

Dear Mr. Smith:

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fairly characterized Louis as a faceless, nameless staff person who did not deserve credit for the efforts he made to take part in the meeting, I found this treatment of Louis grossly unfair.

I write to share my deep disappointment with your coverage of the September 2 Town Meeting sponsored by the Minnesota Consortium for Citizens with Disabilities and As I understand it, Lou& not the Senior Federation. only made an opening stateNot only did the story ment to relay my thoughts on d o m l a y the involvement of Medicare and Medicaid remy community liaison, Louis form, but he also m a i n e d Moore, but the illustration ac- after the meeting to talk with companyingthestory also un- audiencemembers andanswer

to miss and that questions for an additional for my off~ce half-hour.

I should honor the request of two highly-respected groups.

The sponsors of the event had been notified that I would be It was unfortunate that I could unable to attend the event per- not attend the meeting, but I sonally, and they had asked to have complete faith in Louis have P member of my staff and the other members of my attend on my behalf. I do not staff to apprise me of any istake lightly asking a member suesraisedand relay comments of my staff to take time away to me from my constituents. from his family to work on a holiday weekend (especially As the ranking Democrat on Labor Day weekend), but I felt the H a w Budget Committee ,6fthe House this event was too impr@mt mid mm'$a~

LeAnne & Larry Dahl with Bruce Vmio

Appropriations Committee, I have been on the front lines fighting against Republican efforts to cut or eliminate programs vital to disabled persons and senior citizens. I take cutbacks in Medicare, Medicaid, and other federal programs very seriously, and I understandthat the Republicanagenda is misdirected and unfairly targeted at those whoneed and deserve federal assistance.

planned will indeed take plslce.

Youcan beassured l willmgke every effort to attend.

Sinemly, Martin Ohiv Sabo

Member of Congress Editor's response:

Sony, we can't apologize for Scott Adams' depiction d t h e Town Meeting event in our September 10th issue. He was . p. 10 I hope theadditional meetings L e w - ' ~ n ton

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October10,1995

Access Press Polling Places Change I CLASSIFIEDS PERSONALS for 1995 Elections Due to construction at Park, Library, School, and public highrise buildings throughout the City, 13 polling places will be changed temporarily for the upcoming City elections. Five polling places will be moved permanently, four of them to improve accessibility for people with disabilities. Signs posted at previous polling places will indicate the new polling place name and address. Here is a list of the permanent changes: Wardffrec.

1994 Location 1995 Location Millam-Magunson Audubon Park 2727 Central Ave N E 1320 29th Ave N E Friendship Manor 5 3 YMCAISr Citizen Center 171 1 West Broadway 1710 Plymouth Ave N 6 1 Whittierpark Salem Lutheran Church 26th St and Grand Av S 610 W. 28th St 7 4 Westminster Church Wesley United Methodist 101 E Grant St 12th St & Nicollet Mall 13 13 Fire Station #22 Lake Pointe Corporate Ctr 3025 Market Plaza 3100 W Lake St

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Here are tlre temporary clranges: WardIPrec.

1 9 3 5 4 6 4 10 5 9 5 10 6 4 6 7 7 12 10 5 10 1 l 11 7

1994 Location 1995 Location Spring Manor Sibley Triangle Apartments 828 Spring St NE 616 Washington St N E Dickman Park Highrise St. Anthony Highrise 710 2nd St NE 3 11 Universtiy Ave NE Hamilton Manor Highrise1 N United Methodist Chr 1314 44th Ave N 4350 Fremont Ave N Oliver Manor Highrise Christ English Luth. Chr 3210 Oliver Ave N 3 1 16 Oliver Ave N Harrison School First Station #16 1500 Glenwood Ave N 1600 Glenwood Ave N The Atrium Highrise Downtown Library 3 14 Hennepin Ave 300 Nicollet (Heritage Hall) Burckhardt Manor Highrs First Christian Church 220 1 l st Ave So. (lounge) 2533 1st Ave S Whittier Park Salem Lutheran Church 26th St and Grand Ave S 610 W 28th St Walker Library Grace Trinity Church 2880 Hennepin Ave 1430 W 28th St Horn Towers Highrise YMCA 3 121 Pillsbury Ave 3335 Blaisdell Ave Walker Library (a4sh 2880 Hennepin Ave 1430 W 28th St Pearl Neighborhood Ctr Diamond Lk Lutheran Chr 414 Diamond Lake Rd E 58th St & Portland Av S

Anyone with questions about the election or where to vote ma) :all 673-2070.

Get On T[--2 Ir-t: On October 14th the Minne- ta Extension Services attempt CESS MNIDATA IS POW- Glenwood Avenue North, sota Extension Service will have an Open House from 10:OOam to Noon and 1 :OOpm to 3:OOpm in order to introduce the lnternet to people in the community.

There is a disproportionate availability of information via the lnternet to individuals who can afford it. The Internet is growing by leaps and bounds and it is important that people from all cultural backgrounds are represented. Technology is already a way of life for many Americans. There are many African-American, Chicano, Latina, and a few American Indian and Hmong Home pages available on the Intemet. The Public Access site located at 1525Glenwood Avenue North is the Mimeso-

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to level the playing field. This community site is one of 60 established throughout the state by the ACCESS MN project. The project represents an opportunity for communities to evaluate the merits ofthe Intemet, determinecommunity needs and assess the various options for connecting to the Internet.

Minneapolis,MN 55405. You can E-mail them at dstone@mes.umn.edu or skane@mes.umn.edu.

ER project is supported primarily with public funds, the sites will not provideaccess to electronic mail and commercia1 services such as CompuServe, American Online and Prodigy. Users will be unable to participate in discussion groups found on the Internet.

The project will also not provide Internet access to homes.

Who knows better than you the PCA services you need?

The University of Minnesota, including the MN Extension Service, is committed to the policy that all persons shall have equal access to its programs, facilities, and employment without regard to race, The project will continue religion,color, gender,nationthrough Spring 1996. Formore al origin, handicap, age, veterinformation call Debra Stone an status or sexual orientation. or Siobhan Kane at 374-8400, or write to them at 1525

At Allied Health Alternatives, we work you to create a health services partner We'll provide competent nursing supervision that supports your goals and objectives, plus knowledgeable assistance and coordination when you need it.

People who use the ACCESS MNIDATA IS POWER site to Call 544-1655 link to the Internet will be able to view, print, and download for our FREE brochure titled information contained in elecI l l I I I q "Choosing a Personal Care Assistant." tronic files. This information p l l l l l l l l l l includes access to maps, cul- I Don't Miss An Issue! Subscribe Today! 1 tural information, specific II Allied Health Alte neighborhoods, music, health I $12 Buys A Full Year (12 Issues) Of Support Services care information, university I Access Press I Nursing5401 research, online books and Gamble Drive; Suite 235 magazines. Because the ACMinneapolis, M N 55416 l;-

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