Ability Needs Autumn Q4 2023

ABILITY NEEDS

AN OFC_Autumn 23 Q4 _ability needs COVER may 08 29/09/2023 14:23 Page 1

The essential journal on disability

Motoring & Mobility

Adapting Your Home

Kids Products

AUTUMN Q4 2023

£2.00 Quarterly Team BRIT

Baroness Grey-Thompson DBE

Air Comfort

Deluxe V2 Chair Try the ultimate chair in pressure care TODAY!

The Product The Air Comfort Deluxe V2 Chair is a patented airgonomic seating system. Developed in the treatment and prevention of pressure issues relating to long term seating, the pressure redistribution design offers full patient comfort. The seating surface has no seams or gaps making it easy to wipe clean, repair and maintain.

Easy to manoeuvre with foam grip, ergonomic handles.

Removable and adjustable headrest cushion for optimum positioning.

Optional Extras

Fully adjustable foot rests

Can facilitate a TiS (Tilt in Space) position with adjustable back & lower sections.

Meal or activity tray

Fully adjustable wings as well as drop down arm sections to allow for easy side transfers.

Adjustable lap belt

3 locking castors with the addition of a locking directional castor for in-line travel.

Tel: +44 (0)1626 331 655 Email: customerservices@silvalea.com Website: www.silvalea.com

1836 Air Chair Ability needs Ad.indd 1

FIND US AT STAND

G40

VAT Reg No. GB 797 412786 Company No: 04350939 Silverhills Buildings, Decoy Ind. Estate, Newton Abbot, Devon, TQ12 5LZ, UK ADVENA Ltd. Tower Business Centre, 2nd Floor, Tower Street, Swatar, BKR 4013. Malta FM 35946

EMS 609677

18/09/23 08:50

ABILITY NEEDS

ABILITY NEEDS

ABILITY NEEDS The essential

journal on disabil ity

Motoring & Mobility

Adapting Your Home

Kids Products

7 Montgomerie Terrace, Contents 3 Motoring and Mobility Ayr, KA7 1JL - Featuring the latest vehicles and products available in the mobility marketplace Tel 01292 287574 View Fax 01292 266656 22 -Tanni’s Baroness Grey-Thompson DBE – Tanni highlights that EV charging Team BRIT

AUTUMN Q4

2023

£2.00 Quarterly

Baroness Grey-Thompson DBE

email: abilityneeds@btinternet.com web: www.abilityneeds.co.uk

All Rights Reserved No part of this publication may be reproduced or used in any way without written permission of the publisher. The views expressed in this magazine are not necessarily those of the publisher and although every effort has been made to ensure that the information is accurate, the publishers take no responsibility for errors and omissions. No responsibility can be accepted by the publishers for any claims made by the advertisers in this publication.

Front cover ph Monarch Mobilotograph courtesy of ity

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stations are not accessible and how the move to electric cars will have a big impact on disabled people

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Eddie Peacock - The free lunch? – Eddie discusses how being offered something for free is a powerful motivator and that looking upon the NHS as a free service creates ignorance of the real cost

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Industry Insight - Time to end the unaccountability of hospital managers? – following the conviction of Lucy Letby Angus voices his concern over the trend of senior hospital managers not being held accountable for their failings

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Team BRIT - Project SEB – find out about Team BRIT’s latest project to develop innovative driving solutions to support deaf drivers into racing and catch up on Team BRIT’s year so far

55

Tea Break - Take a break and put your knowledge to the test

Purchase a digital copy of Ability Needs at www.magzter.com

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AWARD WINNING

• Recommend by Healthcare Professionals ͻ ƚ ,ŽŵĞ ;ůŽŶŐ ƚĞƌŵ ƐŽůƵƟ ŽŶͿ ͻ ƚ ZĞƐƉŝƚĞ ;ǁŚĞŶ ƌĞƋƵŝƌĞĚͿ ͻ &ŝƚƐ ƚŽ Ăůů ĚŽŵĞƐƟ Đ ďĞĚƐ • Fits to all Hi/Lo Care beds ͻ KŶ Ă ŵĂƩ ƌĞƐƐ ŽŶ ƚŚĞ Ň ŽŽƌ • Lightweight – take anywhere • Machine washable • Fits to 200x90cm single bed • Fits to 190x90cm single bed • Fits to 180x90cm single bed

/ĚĞĂů >ŽŶŐ dĞƌŵ ^ůĞĞƉŝŶŐ ^ŽůƵƟ ŽŶ dŚĞ ůŽƵĚ ƵĚĚůĞ ŝƐ Ă ŵƵůƟ ĂǁĂƌĚ ǁŝŶŶŝŶŐ Ͳ DĂƌŬĞĚ Ͳ ĐůĂƐƐ ϭ ŵĞĚŝĐĂů ĚĞǀŝĐĞ͘ /ƚ͛Ɛ ƚŽƵŐŚ͕ ƌŽďƵƐƚ ĂŶĚ ĚƵƌĂďůĞ ĂŶĚ ŝŶ ũƵƐƚ ϱ ŵŝŶƵƚĞƐ ŝƚ ĐĂŶ ďĞ Į Ʃ ĞĚ ƚŽ ĂŶLJ ƐŝŶŐůĞ ďĞĚ ƚŽ ĐƌĞĂƚĞ Ă ƐĂĨĞ ĂŶĚ ĐĂůŵŝŶŐ ƉůĂĐĞ ĨŽƌ Ă ĐŚŝůĚ ƚŽ ƐůĞĞƉ ĂŶĚ ƌĞůĂdž͘

,G8:<,8M<I <;J Tel: 01905 347538 info@spacesaverbeds.co.uk www.spacesaverbeds.co.uk

,ƵŐĞ ĐŽƐƚ ƐĂǀŝŶŐ ĐŽŵƉĂƌĞĚ ƚŽ ĐĂƌĞ ĐŽƚƐ Θ ƐŽŌ ƐƵƌƌŽƵŶĚ ďĞĚ ŽƉƟ ŽŶƐ͘ ,ŽŵĞ ĂƐƐĞƐƐŵĞŶƚƐ ƚŚƌŽƵŐŚŽƵƚ ƚŚĞ h< ĂƌĞ ĂǀĂŝůĂďůĞ͘ 2

Ability Needs Magazine

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Get out there with Triride

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RIRIDE ARE A market leader in the production of Power Add-on devices.

Whether you want full electrical assistance, or a Hybrid assisted handcycle we have you covered. Simply attach to your manual wheelchair in seconds and discover a new Freedom.

The Triride Special Compact HT with all road tyre is a great all-rounder providing full electronic assistance. Small, compact, packed with plenty of power to tackle those steeper inclines and handle some off-road use, but small enough and light enough to transport in the boot of your car.

If you are looking for a more physical challenge the Triride Tribike Hybrid provides a simple fun way to keep active and enjoy the road ahead. A hybrid customisable power assist system offers electrical assistance when pedalling which makes tackling those hills a breeze. Combines with a choice of gearing and tyre options the Tribike provides great versatility for most terrains. You even have an ondemand throttle to help get you started on those steeper inclines.

If you’re looking for a more compact option, we also have the Tribike Hybrid available with a 16” wheel providing a super compact footprint and its lightweight frame make the Tribike Hybrid a great transport option. Whether you need full electric or the active hybrid option, enjoy the great outdoors with friends and family.

Find out more information on www.triride.uk

F R E E D O M

Triride technology compliments the drive performance with Intelligent Cruise Control and Intelligent Braking System makes driving with family and friends a breeze. Paired with Triride’s patented attachment method, fitting to most manual wheelchair is possible and customisable to each individual user requirements.

Ability Needs Magazine

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New Easy Eye Care service goes live in SE London

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new community eye care service has been commissioned in South East London for people with learning disabilities and/or who are autistic.

Called the Easy Eye Care service it gives the opportunity for people who have a GP in the boroughs of Bexley, Bromley, Greenwich, Lambeth, Lewisham and Southwark to book an appointment at an accredited optical practice close to home where they will be offered a longer appointment time or multiple appointments together with suitable adjustments to meet their individual needs.

People with a learning disability or autistic people of all ages can self-refer, be referred by a carer or family member, their GP, Hospital Eye Service, advocacy group, local Learning Disability team, mainstream SEND provision or community eye care clinic.

People aged over 14 years who are on their GP Learning Disability register are entitled to an Annual Health Check.

This will include a discussion on their current eye care and GPs can then refer the person to the Easy Eye Care service for annual eye and vision care.

Prior to the appointment they will be asked to fill in an “About me and my eyes” form which will be available from their optician and on completion of the sight test the optometrist will give them a plain English “Eye Test Results” report on their eye health and recommendations to optimise their vision and support.

Approximately 9,000 people in South East London have a learning disability and some 21,000 are autistic. They can face significant health inequalities compared to the rest of the population and often experience poorer access to healthcare.

Adults with learning disabilities are 10x more likely to have serious sight problems (children 28x) than the general population and less likely to receive timely and appropriate eye care such as sight tests, glasses and referrals into the hospital eye service for more complex eye health issues.

Under reporting of eye and sight problems such as significant refractive error (the need for glasses) can occur due to difficulties in communicating and signs and symptoms being overlooked or attributed to the person’s learning disability (diagnostic overshadowing).

With appropriate preparation and adaptation, a successful sight test can be completed. You don’t need to 4

be able to read or talk and no-one is too disabled to have a sight test.

The Easy Eye Care service already operates in several other areas in England and SeeAbility together with other stakeholders have been working over the past 18 months towards commissioning across the five London Integrated Care Board regions. South East London is the first to go live in July 2023.

It has also recently been announced by the Department of Health and Social Care that children who attend all special schools in England should receive a sight test provided at their special school. This service is currently running in some special schools in South East London.

Children leaving these special schools will be referred into the South East London Easy Eye Care service ensuring continuity of eye care as they transition to adult services.

The benefits of this service to people with learning disabilities and autistic people are: people can access routine individualised eye care in their local community, without needing to go to the hospital eye clinic improved access to glasses to correct vision, along with ongoing aftercare and adjustments. preventable sight loss can be avoided increased independence and reduction in social care support health inequalities will be better addressed

The charity SeeAbility has Eye Care Champions with lived experience of learning disabilities and autism who are engaged in promoting the service widely to learning disability organisations across South East London.

“Because I was born with sight problems, I have a lifetimes experience of what good eye care looks like for people with learning disabilities. The Easy Eye Care pathway will help people to maximise what they can see and detect eye problems early on. This will help people with learning disabilities to be independent and live great lives! “ Grace McGill, London Pathway Expert by Experience, SeeAbility For further information, visit https://sel-mecs.com/learning-disabilities-andautism/ or https://www.seeability.org Ability Needs Magazine

AN_p05-topro_02_AN107.qxd 28/09/2023 14:08 Page 1

ticularly su rprised tto o rreceive eceive p were particularly surprised poetry Nancy.

She obviously we re par oetry ffrom rom tthe he llovely o v e ly N ancy. Sh e iis so bviously a llady ady wi th a llively iv e ly m in d a nd a very ve ch e e r fu l o with mind and cheerful outlook.

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No w ffor or tthe he ccommercial Now bit!

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N THE hurly-burly world of business, we in the mobility industry are privileged to occasionally receive happy and cheerful messages of appreciation from our customers. By nature, our customers are less able and often elderly. It is nonetheless a unique pleasure to be sent a message of thanks from a truly delighted customer.

Here at Topro we have been graced with a few of these dispatches recently and we thought that there is no better way to promote our products and to show our gratitude than to share some of them here.

We can assure you that all these people are more than happy to broadcast the benefits they have received from their Topro rollator.

We know that the greatest benefit of increased mobility is that it grants the ability to take to the open air. This, in turn, has huge benefits to both mind and body. Whether the rollator is a vital tool for reaching the doctor and the shops or for trips to garden centres and friends, keeping mobile equates with freedom.

The three ladies pictured here live in various parts of the Nancy, country but all our took the time and favourite effort to contact poet us. We have many years of experience in our team here at Katie in her Topro, but we were garden particularly with surprised to Topro`s receive poetry from Greg the lovely Nancy.

Doughty She is obviously a lady with a lively mind and a very cheerful outlook.

We know that she Jenny, does not mind us Nigel`s sharing the fact mum, that she regularly who lives provides us with near insightful Bristol messages and poetry. We think her “ode to freedom” is a profound expression

Ability Needs Magazine

To Topro has off rollators the feature feature rich rich Hestia Hestia indoor indoor from the p ro h as a wide wide range ra n g e o rollators covering covering every eve need from e r r a in R ollator. We also model Olympos Alll T Terrain Rollator. have unique Odysse also hav e tthe he uni que O dysse mo del through through tto o tthe he O lympos ATR ATR Al addition our our Neuro, N e u ro , w which easily with braking ith iits ts sspecialist p e c ia lis t b raking ssystem ystem which folds fo ld s e asily tto o ttake ake on on holiday. holiday. In addition uch as P arkinson`s D isease, has it designed Parkinson`s Disease, its own place so wn p lace in tthe he designed for for neurological neurological cchallenges hallenges ssuch 5G complete complete our ou impressive m p r e s s iv e p range. portfolio.Topro ortfolio.Topro products products range. The The ever ever popular popular Original Original and and 5G nd sspecification pecification and tthere here iis are and model sam odel tto o ssuit uit any need. are renowned renowned for for high high quality quality build b u ild a reen factory facto in in Scandinavia.

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We distribute throughout the UK through our expert dealer network, and we can find a trustworthy, ur e x p e rt d eale network, We d distribute our expert dealer and we find etwork, a nd w e ccan an fi nd a istribute tthroughout hroughout the the UK UK through through o competent supplier local to you.

Forhere more tr ustworthy, ccompetent ompetent su pplier llocal ocal tto o yyou. ou. For For m ore iinformation, nformation, her trustworthy, supplier more are e ar e our ccontact ontact det ails: information, here are our contact details: details:

of a positive approach to life in general. Most of all it is truly rewarding to meet someone who is making the most of her Topro 5G rollator.

Now for the commercial bit!

Topro has a wide range of rollators covering every need from the feature rich Hestia indoor model through to the Olympos ATR All Terrain Rollator. We also have the unique Odysse which folds easily to take on holiday. In addition our Neuro, with its specialist braking system designed for neurological challenges such as Parkinson`s Disease, has its own place in the range. The ever popular Original and 5G complete our impressive portfolio.Topro products are renowned for high quality build and specification and there is a model to suit any need. They are built in our own clean and green factory in Scandinavia.

An Ode to Freedom

This message arrived from one of our customers, Mrs W of Oxfordshire

Trust TOPRO for something completely different.

For more information contact us on: info@topro.co.uk

TOPRO Troja 5G

Responsibility for the next generation Made Norway Don`t miss out onin your chance to win your high street vouchers.

5

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WELCOME TO SCOOTER STORE LIMITED

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cooter Store Limited is an established company with over twentyfive years’ experience, which has become very popular especially with the elderly and disabled community nationwide.

The concept of a small, easy to use store for securing mobility vehicles has been extremely well received by many local authorities. Housing Associations, County, City and Borough Councils as well as charitable organisations have installed Scooter Stores throughout the country with great success; whilst thousands have been exported to Europe. This has solved storage and independence issues for many people.

In our experience we have found that many people who use mobility scooters find it very difficult getting their scooter in and out of their property without help or assistance. Storing them in living rooms and hallways is not always ideal as they take up a lot of room and can cause fire hazards.

The scooter store itself is simple and was designed in response to a demand from the public. The standard unit is 1525mm long x 1220mm wide x 1070mm high and made of 2mm steel the store comes in a green finish.

Bespoke scooter stores can be manufactured to different sizes to suit your specific mobility scooter requirements. Our Scooter Stores are delivered flat packed for installation to inaccessible places and are installed by our fully trained engineers. Our scooter stores are all push button controlled and fully lockable. A socket for charging the scooter is provided within the store. The Scooter Store requires very little maintenance.

The Scooter Store is such a marvellous alternative which is secure and theft proof, and because it is so easy to use independence can be greatly improved for mobility vehicle users.

Our contact details are: Scooter Store Limited, Unit 11 Riverside Business Park, Cambridge Road, Harlow, Essex, CM20 2HE. Tel: 01279 453565. www.scooterstoreltd.com

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Ability Needs Magazine

ADVANCE PAYMENT

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Is an Inclusive Santa’s Grotto Important?

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HE answer is simply, yes it is! Warrington Disability Partnership (WDP) have over 20 years’ experience of running a fully inclusive Santa’s Grotto.

Not only is WDP’s Santa’s Grotto fully wheelchair accessible, so too is the 40m undercover winter wonderland that is held in the indoor riding school at Walton Hall and Gardens, Warrington. Professional photos will be available from the onsite photographic team. Other activities include Yule Log decorating, Festive Crafts, Christmas Gifts, Giant Tombola and Reindeer Trail.

WDP’s Santa can communicate with deaf children and parents who use British Sign Language.

After listening to parents, WDP have included Quiet Hours, where the individual needs of children, parents and grandparents can be met, including those who have Autism, Dementia or Alzheimer’s.

The Quiet Hour also caters for people who have sight loss, with guided tours and an interactive sensory zone which includes

touching, feeling and smelling Christmas trees, decorations and other display items.

Mrs Clause and her team of elves will be on hand to assist Santa in making it a very special day.

WDP’s Santa’s Grotto opens on Saturday 25th November and is open weekends and the week before Christmas.

An inclusive 3k Santa Dash will be held on Sunday 10th December at the same venue. Santa Suits are included in the £10 entry fee. Prizes for best Christmas themed fancy dress.

For more details visit www.disabilitypartnership.org.uk/events/grotto.shtml or call 01925 240064.

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About Acorn

F

ounded in 1992 in Bradford, West Yorkshire, Acorn Stairlifts has grown to become the world’s biggest company concerned solely with the manufacture, sale and installation of home stairlifts.

Having installed approaching a million stairlifts globally, Acorn is a dynamic industry leader in innovation and design. At the forefront of Acorn’s sustained growth has been its unique FastTrack® modular rail system for curved staircases.

This pioneering system enables Acorn engineers to fit a bespoke curved stairlift in just a few hours by assembling ready-made rail sections on site to precisely follow the contours of a customer’s staircase.

A survey of each staircase determines which rail sections are needed, meaning Acorn can fit a curved stairlift within days of a customer inquiry – even next day if urgency is key.

Acorn has wholly-owned subsidiaries operating in Italy, Germany, South Africa, Australia, New Zealand, Canada and the USA, where it is the market leader for stairlifts. Its UK-made stairlifts are exported to around 80 countries worldwide so that somewhere in the world, an Acorn stairlift is installed every eight minutes.

Evolution of Acorn’s stairlifts through research and development is an ongoing process, with refinements and improvements continually being made. Their build

quality has been recognised by several awards and commendations, including the Arthritis Foundation's prestigious Ease-of-Use commendation.

The way Acorn operates as a responsible business has also been officially recognised, first through the Government-endorsed 'TrustMark' award and more recently through membership of the British Healthcare Trades Association (BHTA) and the Trading Standards Approved 'Buy With Confidence' scheme.

Valued customer feedback continues to guide product development and customer service procedures, with Acorn maintaining an ‘Excellent’ rating on leading independent online review site Trustpilot.

Because stairlifts are all that Acorn does, its aim is simple – to be the best provider of stairlifts in the world.

Give your life a lift with an Acorn Stairlift and call 0800 016 9715

My stairlift has made a massive MJGF DIBOHJOH EJŢ FSFODF Mrs. Taylorson, Cumbria

Stay in the home you love For straight and curved staircases FREE no-obligation survey and quote 365-day local service and support

Ability Needs Magazine

9

AN_p16-17 stairlift_02_AN107.qxd 28/09/2023 10:26 Page 1

New designs and technologies – reducing the wait for stairlifts

W

HETHER it is transport, internet access, shopping or eating, nowadays everyone is always in a hurry and people don’t seem to have time to relax anymore.

Rapidity it seems is addictive, the more we get of it the more we want.

Acorn Stairlifts

television or carpet it’s understandable to want them delivered straight away, so we can show them off and enjoy using them. If delivered late, on the whole, the Always being in a hurry, rushing from pillar to post, cramming in ever more work and toil, actually reduces only side effect is mild to irritating disappointment and life will still go on, generally unaffected. That said rather than increases leisure time. Before we know it, there are, of course, many things where speed of we’ll be retired and contemplating our lives and conveyance has its place when seeking and enabling wondering where it’s all gone. We’ll be thinking all a more tranquil and improved quality lifestyle. that haste was just a waste. As waste of time, quality None more so, than the delivery of goods and time. In the end, life is for living and no matter how services aimed at improving the quality of life for the long or short our lives transpire to be, we should all elderly and disabled. There are many reasons why strive to enjoy more quality time.

Naturally it’s all about a sensible balance, weighing people delay ordering homecare products; these range from administrative bureaucracy to stubborn up the need for speed with the practicalities of pride and recognition of need. However, it is a fact ensuring fast delivery. We need to ensure that our that once ordered, delivery is vital. Vital to ensuring desire for faster delivery is tempered with the product commencement of patient care and enhancing living or service needed so that the experience or fulfilment standards. is enjoyed to its maximum.

As homecare equipment is generally destined for When buying something new such as a car, frail and disabled people, many of whom are at risk of falls and accidents prior to installation, speed of delivery is often more beneficial than a discounted price. This is particularly evident with regard to the larger products such as stairlifts and homelifts which are very good at reducing the risk of falls.

This is important as each year the NHS treats about 650,000 falls from the elderly at a cost of some £2 billion pounds (this figure doesn’t include the cost of long-term care or emergency hip replacement surgery).

Government research has identified that adapted homes for the elderly with special equipment fitted such as grab rails, hoists and for the frailer, stairlifts and homelifts can greatly improve the home for the inhabitant and reduce the instances of accidents by Platinum Stairlifts continued on p13

10

Ability Needs Magazine

con

INTRODUCING THE PLATINUM ERGO CURVE STAIRLIFT Introducing the new ergo Curve by UK manufacturer Platinum Stairlifts.

With market leading adjustability in the chair, space saving options, 25 stone weight capacity and a stylish new look, the ergo Curve is the reliable and versatile solution for your stairs.

ERGO CURVE FEATURES: FULLY FLEXIBLE

ULTIMATE COMFORT

A smooth and comfortable twin-rail stairlift, ideal for curved staircases with an ergonomic seat that is fully adjustable to you and packed full of space saving solutions.

The Platinum ergo Curve stairlift comes with an ergonomic seat option, adjustable arms, backrest and footplate providing an easy and comfortable journey.

WEIGHT OPTIONS

SAFETY AS STANDARD

The stairlift has a standard weight limit of 120kg which can be increased to 160kg accomadating all shapes and sizes.

Safety is paramount, for your peace of mind. Every stairlift is designed and tested to the highest standards before it leaves the manufacturing facility.

Call Platinum Stairlifts on +44 1535 63 11 77 to find your local Platinum Approved Partner Platinum Stairlifts Ltd, Unit 10 Crosshills Business Park, Keighley, West Yorkshire, BD20 7BW www.platinumstairlifts.com | enquiries@platinumstairlifts.com

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Bruno Stairlifts Deliver High Lift Capacity & Performance

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RUNO’S Elite stairlifts, featuring a 30st lift capacity, are available for indoor or outdoor – straight or curved – staircases.

“Because the Bruno Elite is a high-capacity stairlift that offers considerable chair adjustability and a reputation for long-lasting reliability, it’s a great solution for indoor or outdoor staircases,” explained Ian O’Neill, UK Business Development Manager.

The seat and footrest height, and space between armrests, on the Bruno Elite is adjustable and the backrest and seat are padded, enabling a comfortable ride for a varying body type.

Elite straight stairlifts use a vertical rail that optimizes open space on the stairs. In addition, the rail’s covered gear rack eliminates exposure to grease and gives a clean, sleek appearance. A folding

Elite Indoor

30 st | Straight or Curved | Customisable

Elite Outdoor

30 st | Straight or Curved | Performance tested -15°C to 52°C

(0) 151 559 0732 | bruno.com/uk 12

“stacking” rail option is available for installations where the bottom rail may cause an obstruction.

Bruno’s curved stairlifts also use a vertical rail but the curved rails are bespoke and handcrafted to ensure a tight, precise fit that gracefully flows into every corner. Multiple optional rail configurations such as 90- and 180-degree park positions are available.

Options to further customize an Elite indoor stairlift to meet specific individual needs are also available, such as a power folding footrest, power swivel seat and larger seat pad.

Bruno’s outdoor stairlifts are purpose-built for varying weather conditions. The outdoor Bruno Elite feature weather-resistant materials including marinegrade vinyl, durable outdoor paint and a lightweight cover. They are also temperature tested from -18°C to 52°C. While Bruno Elite straight and curved stairlifts are engineered to handle a 30st lift capacity, the popular Bruno Elan features a 21 st. lift capacity.

“Bruno’s straight Elan indoor stairlift offers the closest rail-to-wall dimension on the market, can be installed on the left or right side and rotates a full 90 degrees at the top landing,” said Ian. Multiple options – including a power or manual folding rail, power footrest and power swivel seat are also available for the Elan.

To find out more about Bruno stairlifts, contact Ian O’Neill at ian.oneill@bruno.com or www.bruno.com/uk.

Ability Needs Magazine

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Bruno Lifts

ts continued from p10

around sixty percent.

In addition, being able to stay in the comfort of one’s home, near family and friends, is always going to be more desirable than a care home or hospice.

Installing a stairlift or homelift is a very cost effective, easy and safe way of securing more independence and contentment at home.

In the past, stairlifts destined for winding or intricate staircases could take many weeks before they could be delivered and installed. Each day, many frail and elderly customers undergo varying degrees of risk and discomfort while they wait.

However, things are improving with regards to providing stairlifts for more complex and curved staircases. A number of stairlift manufacturers and retailers have recently invested in a variety of initiatives and processes to address delivery times.

Stairlift manufacturers Acorn Stairlifts, Platinum Stairlifts and Bruno Lifts and through floor homelift Terry Lifts

suppliers Terry Lifts, for example, have invested in new product, manufacturing and installation processes to speed up delivery times to ensure the frail people who need them receive the benefits sooner. All of this now means that straight and curved stairlifts and homelifts can now be installed far quicker than previously, which is great news for the frail and disabled people waiting for their, quite literally, life enhancing and fall risk reducing lifts to be installed.

FOR MORE INFORMATION AND A QUOTE PLEASE

CALL 01565 752800

Re-connecting you with your home, garden and community with our range of lifts for wheelchair, standing and seated use.

Thinking about how your home can meet your needs, now and in the future?

Proudly designed and manufactured in Cheshire

Comprehensive home survey

Peace of mind when buying British

Full range of internal and external Lift solutions

Installed in as little as two days

All lifts available to try out in our showroom

Unit 1-3, Longridge Trading Estate Knutsford, Cheshire, WA16 8PR

Ability Needs Magazine

www.terrylifts.co.uk enquiries@terrylifts.co.uk

13

AKW Rise & Fall Bidet The clinical features and benefits of the AKW Rise & Fall Bidet help to promote dignity and independence for clients with a range of requirements.

Scan this QR code to see a video of Kate Sheehan, Director of The OT Service, expertly demonstrate the use of the AKW Rise & Fall Bidet.

If you would like to discuss this product with your local AKW representative call 01905 823298, email marketing@akw-ltd.co.uk or visit www.akw-ltd.co.uk/contact

3529_AKW-1PP A4 AD-RISE AND FALL BIDET_05.indd 1

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The Changing Face of Specialised Home Care Hello everyone, Samantha here from Happiest at Home. Today, I’d like to talk about something that is very close to our hearts – the changing landscape of specialised home care and the crucial role of dedicated carers.

I

n recent years, we’ve seen a significant shift in the home care industry. More and more, people are recognising the necessity of personalised, specialised care for their loved ones. At Happiest at Home, we believe that this is a step in the right direction. After all, every individual is unique, with their own set of needs, preferences, and life experiences. It only makes sense that their care should be just as unique.

One aspect of this personalised approach that we feel strongly about is the importance of having a dedicated carer for each client.

Why is this so important, you ask?

Firstly, consistency is key in any form of care. By having a dedicated carer, our clients can build meaningful relationships based on trust and mutual respect. This relationship becomes a source of comfort and familiarity, which can significantly enhance the quality of care.

Secondly, a dedicated carer is able to gain an indepth understanding of their client’s needs, preferences, and routines. This intimate knowledge allows them to provide a level of care that is truly tailored to the client. They can anticipate needs, respond effectively to changes, and provide the kind of care that feels less like a service and more like assistance from a trusted friend.

Lastly, having a dedicated carer ensures continuity of care. With multiple carers, there’s a risk of miscommunication or inconsistent care practices. A single carer, on the other hand, provides a consistent care experience, ensuring that nothing falls through the cracks.

At Happiest at Home, we don’t rotate our carers.

We strive to match each client with a carer who not only has the right skills and experience but also shares similar interests.

We call them CarePals and believe that they create a more enjoyable and enriching care experience for both parties.

In conclusion, the face of specialised home care is changing for the better. At Happiest at Home, we’re proud to be part of this change, championing dedicated carers and personalised care practices.

Because we believe that everyone deserves to be Happiest at Home.

7 Worrying Things You Should Know Before Buying Home Care Navigate the complex world of home care with our insider guide – and get the right result for you and your loved one. Our guide gives insight into what is available, where to look for funding, and how to get a great care outcome, amongst other snippets of useful information.

Download the free guide at wearehappiestathome.co.uk/freeguide/ or call our client team on 0345 030 3845 Ability Needs Magazine

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AN_p16_RNIB_02_AN107.qxd 28/09/2023 16:51 Page 1 RNIB CEO Matt Stringer chairing the discussion

RNIB tests four solutions to bring accessible voting one step closer

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NIB’S trial of accessible voting solutions – designed to allow blind and partially sighted people to vote independently and in secret – was attended on Monday by voters with sight loss as well as delegates from the Electoral Commission and the Department for Levelling Up, Housing and Communities (DLUHC) as well as other internal and external stakeholders.

We’ve been campaigning for a wider range of accessible voting solutions to be tested and made more easily available for many years.

We hear frequently from people with sight loss of how they have faced challenges in exercising their democratic right to cast a secret and independent vote, because the practical act of voting – making a cross in a specific location on a piece of paper – is fundamentally a visual exercise. You can read more about our research in our Turned Out Report 2022.

We’ve worked alongside the Electoral Commission and DLUHC to find solutions to ensure future elections are accessible for the 350,000 blind and partially sighted voters living in the UK. Four accessible solutions, which were tested at our office in London, are a range of tactile and audio devices which allow people with sight loss to determine the order of the list of candidates and mark their desired box independently.

We tested four different solutions:

1. An audio player with a tactile overlay that allows you to listen to the candidate list in the order they appear on the ballot paper, the plastic overlay can then be used to identify where to mark the paper ballot.

2. A new type of tactile voting device (TVD), which is similar to the solution currently in place, with a new built-in audio capability. The device fits over the ballot paper to help you locate the voting boxes with buttons per candidate which, when pressed, will read out the corresponding candidate.

3. A prototype template made of cardboard that can be placed over the ballot paper; this works in a similar way to the tactile voting device. A matching QR code can be linked to an audio recording of the candidates that can be accessed via a smartphone.

4. Microsoft’s Seeing A.I. app, testing how the app can be used with a reference ballot paper to determine the order of the candidate list.

“Nearly half of voters with sight loss are dissatisfied with the electoral process. While there needs to be major changes to the current system to improve voting experiences for blind and partially sighted people, these changes are not insurmountable. We are here today to take steps to make accessible voting a reality for blind and partially sighted people.”

Matt Stringer, RNIB CEO “I was impressed at the thought behind this session and the efforts being made to give me, and other deaf blind people like me, the chance to reclaim our independent right to vote in ways that make the process smooth and understandable without being complicated.”

Jane, one of Monday’s trial participants “Everyone should be able to register and vote independently and in secret, but we know that many blind and partially sighted voters still face barriers to voting. There have been significant improvements to the law which mean that innovation in elections is now possible, and yesterday’s event is testament to that.

It was great to see the range of technology that might enable people with sight loss to have a better experience of voting and have their say independently. The results of the trial, and the experiences of those who took place, will play an important role in helping to make elections accessible for all.”

Tom Hawthorn, Head of Policy at the Electoral Commission The findings will provide a valuable body of evidence for our continued work to make sure elections become accessible to people with sight loss.

We look forward to continuing our engagement with the Electoral Commission and DLUHC to ensure the results from this trial inform future elections.

For more information visit www.rnib.org.uk 16 26

Ability Needs Magazine

S T A N D I N G

W H E E L C H A I R

Providing independence & comfort through standing Designed and developed in the Midlands over the past 15 years the Genie V2 is one of the most advanced wheelchairs available. Combining advanced engineering and practical design, the Genie provides independence and comfort for all levels of dependency.

At Genie Wheelchairs we pride ourselves on developing practical and affordable solutions that make your day to day life that little bit easier! Appropriate for all levels of dependency from our basic model through to a complete care system tailored to each individual.

The Genie V2 has been designed with your everyday needs in mind, providing upper and lower body support to allow washing, air circulation and relief from pressure pain. The ability to stand opens up many possibilities such as access to previously inaccessible places or even getting back into the workplace as many of our Genie users have, whilst providing everyday health benefits such as aiding circulation and digestion. Standing is an important part of maintaining good health. The Genie can aid in the prevention of bladder problems and assist with bone development and pressure management.

The Genie V2 is incredibly easy to manoeuvre, light and compact when stored. It is easily folded away into a cube which is ideal for transportation on planes or in non converted vehicles, enabling you to do more and go further in comfort. Providing independence for yourself and your carer is our main aim.

With its range of control options from the attendant control system, which allows a carer or family member to drive, stand and manage comfort to our unique head control system allowing you to use all functions of the Genie just by head movement alone. The Genie V2 comes complete with hygienic, easytouse toilet facilities that can revolutionise your quality of life. All features are removable depending on your needs. When you can sit, recline, stand up and be mobile in safety without leaving the chair the possibilities are endless.

Everyone’s needs can change.

All the Genie’s facilities and functions can be added or removed easily at any time to suit your requirements as an individual.

Our base unit is easily adapted to accommodate a wide range of additional features, from vehicle docking systems to our unique head control system. And when it comes to one off customization at Genie wheelchairs nothing is impossible, from ventilator shelving to customised seating if you have any special requirements let us know. Nothing is too much when it comes to your comfort and independence.

• Easy transfers from bed to sitting or standing • Custom built to suit all needs • Comfortable & maneuverable • Enhances quality of life • Provides dignity, independence & mobility • Provides many health benefits • Removes boundaries Designed & Manufactered in

GREAT BRITAIN

To arrange a free in home demonstration of all the Genie V2 has to offer, call Easyrise on 01952 610300 or visit www.geniestandingwheelchair.co.uk

People supported by Ambient Support in Lincolnshire enjoying a tea party

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Ambient Support leads the way with its approach to person-centred care Putting People First: The Importance of a Person-Centred Approach to Social Care What is person centred care?

A person-centred approach to social care means providing people with support that places their needs, preferences, goals and overall wellbeing at the core of the care process. Whether in a learning disability, mental health or older people’s service, person-centred care recognises the unique nature of each individual and aims to empower and encourage them to actively participate in decisions regarding their care and support.

This way, the person supported is not merely a recipient of care, but a key decision maker in what that care might look like and how it’s provided.

Respecting individuality This approach also emphasises respect for a person’s autonomy and personal fulfilment. At Ambient, we value the right for the people we support to make decisions about their own life, health and wellbeing. There are several ways to ensure that individuality is respected, including: • Informed decision making: Ensuring that people supported have access to the relevant information needed to make informed decisions about their care.

• Respecting choices and rights: Acknowledging that everyone has different preferences, priorities and goals and respecting their rights to privacy and dignity. This means avoiding making decisions on behalf of a person without their consent, unless legally required or in the person’s best interest.

• Supporting independence: Encouraging people to be as independent as possible and overcome any challenges they may face. They are supported to have control over daily activities, get involved in the community, and to practice key life skills such as cooking, cleaning and maintaining a home.

• Appreciating diversity: At Ambient, we recognise and respect cultural diversity in the people we support and tailor their care with culture, beliefs and values at the forefront.

• Listening and involvement: Caregivers actively listen to a person’s concerns and seek their input when planning their care. As a care organisation, we prioritise co-production with experts by experience and use these insights to better inform our decisions across the board. (Image of guardians) • Empowerment: Empowering people by giving them some ownership over their care, which promotes a positive care experience and a greater sense of wellbeing.

By upholding these principles, the people we support are placed in the centre of their care and are enabled to live purposeful, fulfilling lives of their choosing.

What elements might make up a person-centred care plan?

There are several potential elements that go into making a person-centred care plan, here are just a few examples.

• Assessment: A comprehensive assessment of the individual's needs, preferences, strengths, and challenges. This assessment covers physical, emotional, social, and psychological aspects.

• Involvement: The individual receiving care is included in the planning process. Their voice is heard, and their preferences and goals are considered.

• Realistic Goals: Specific and achievable goals may be set for the care plan, aligning with the person's aspirations and potential areas for personal growth.

• Coordinating Services: When multiple caregivers or professionals are involved, it’s important that different services and personal budgeting (Also known as direct payments or Individual Service Funds) are properly coordinated. Clearly defining roles and responsibilities also ensures seamless care delivery.

• Flexibility: An individual's needs may change over time, and therefore a care plan needs to be flexible and adjustable. It should also be regularly reviewed and updated to reflect any changes.

• Cultural Sensitivity: This means taking a culturally respectful approach and considering a person's background, beliefs, and values when designing support that is right for them.

Communication and trust Open communication creates transparency and improves collaboration between caregivers, care recipients, and their families. This transparency helps everyone involved to have a clear understanding of the care being provided and whether there's any changes in conditions or progress being made.

Trust is key in a person-centred approach because when individuals trust their caregivers, they are more likely to feel safe. They may also feel able to confide in their caregivers with information about their health and well-being, which can lead to early detection and prevention of potential risks. People receiving social care may sometimes feel vulnerable or anxious, and trust and communication with those around them help to alleviate these feelings.

To learn more about The Ambient Way and how we provide person-centred care visit https://www.ambient.org.uk/the-ambient-way 18

Ability Needs Magazine

Equipment that can help you live more independently Are you looking for a reliable and convenient online store to buy equipment that can help you live more independently? If so, why not visit www.manageathome.co.uk, the online mobility and daily living aids retail store of Medequip, the largest provider of Community Equipment Services in the UK working in partnership with local council social care services and the NHS with the main aim of keeping people 10097 independent.

Bellavita Bath Lift Manage At Home offers a wide range of products that can make your daily life easier and safer, whether you need assistance with mobility, bathing, toileting, dressing or eating and drinking, finding the right product for you has never been easier. You can 11401 Nitro Rollator browse by areas of the home, and even choose products from specific manufacturer brands and order securely from our website, with free delivery on orders over £50 and VAT relief on many products, if you are eligible.

We are proud to be part of Medequip, which has over 30 years of experience in delivering Community Equipment Services across the UK with dedicated technicians, engineers and friendly customer service teams that ensure timely and efficient delivery and collection of equipment, as well as maintenance and repair. To find out more 12111 Uccello Tilt-to-pour Kettle about Medequip, please visit www.medequip-uk.com.

© 2023 Medequip Assistive Technology Ltd. All rights reserved. Manage At Home and the Manage At Home logo are trademarks of Medequip Assistive Technology Ltd.

If you want to learn more about Manage At Home and how we can help you live more independently, visit our website at www.manageathome.co.uk or call us on 0800 910 1864. You can also follow us on Facebook and X (Twitter) @ManageAtHome for the latest news and offers.

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@ManageAtHome

0800 910 1864

www.manageathome.co.uk

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FREEFALL DANCE COMPANY CELEBRATE 21ST ANNIVERSARY WITH WEEK LONG FESTIVAL

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irmingham Royal Ballet’s acclaimed Freefall Dance Company have announced details of a week long Festival at Birmingham Hippodrome this November to celebrate the company’s 21st Anniversary.

This joyful and uplifting Festival features new choreographic works in Freefalling for 21 years – ‘Still Life’ at the Freefall Café inspired by Sir David Bintley’s much loved ballet ‘Still life’ at the Penguin Café. The company comes full circle, returning to the ballet that, through the 2002 BRB education project Café Atlantic, kickstarted the formation of Freefall.

The performances will feature pupils from special schools’ Fox Hollies School (Birmingham), Hazel Oak Sixth Form (Solihull), Uffculme School (Birmingham) and adults from All Saints Youth Group (Birmingham) and Reddi Support (Redditch). These are outreach groups, all of which have a personal connection to the Freefallers’ or the Freefall story.

Further highlights include a specially curated exhibition telling the company’s groundbreaking 21 year journey and rich history through film, testimonials and photographs. Visitors to the exhibition can find out how Freefall are ‘creative to the core’, ‘devoted to brilliance’, ‘diverse and different’ and ‘full of heart’.

Closing the Festival will be an evening of screenings.

The evening includes a retrospective collection of some of the great dance for screen films made by Freefall over the year’s including: ‘Stepping Out, Stepping Up’, (Oliver Hodges) inspired by BRB Director Carlos Acosta and the music of Cuban-Iranian band Ariwo; ‘After Bach’ created from a unique collaboration with Sir David Bintley and International Emmy Award-winning director, Ross MacGibbon and ‘We Are Here' a collaboration between BRB principal dancers and Freefall and the third in partnership with filmmaker Sima Gonsai.

Freefall Dance Company was launched in 2002 following a number of Birmingham Royal Ballet learning and participatory projects in partnership with Fox Hollies School in Birmingham. The projects inspired the creation of Freefall to provide a platform for talented dancers in a bracket of society for whom provision is limited.

Freefall comprises Birmingham Royal Ballet staff, freelance artists and teaching assistants, who enable a

group of ten highly gifted dancers to express themselves and their individualities without the restraint of their learning disabilities.

Over the last 21 years, as well as creating its own repertoire, Freefall has been extending its reach through its innovative and collaborative dance development initiatives. To date they have developed relationships with 19 schools, led teacher and dance artist INSETS and worked directly with over 300 young people.

Former BRB Soloist Lee Fisher, Freefall’s Artistic Director, and Co-Founder, said “I feel very proud that Freefall are celebrating such a huge milestone. The company are very much a part of the Birmingham Royal Ballet family, learning ballet techniques and forming their own dance styles.

“The dancers have grown as performers, creators, and dance technicians in many ways. Because we've had the luxury of long-term commitment from multiple partners, the Freefallers’, I believe have developed an enviable ballet technique.

“Freefall shows what's possible and creates an entertaining evening that people just want to come to and enjoy, be moved by, be inspired by and have a great evening.”

The joyous energy of Freefall has transformed the lives of the dancers and the families and communities that they connect with. Many of the dancers have been in the company since it began, creating a real sense of purpose and community.

Amongst other events, the company are creating a documentary that will track the participatory project.

And, later this year, details of a specially commissioned piece of academic research, looking at the outcomes and impact of Freefall over the 21 years, will be announced.

Freefall meets weekly at Birmingham Royal Ballet studios. The sessions are highly structured and are equally divided between formal ballet technique training and choreographic work. Freefall is a fine example of collaborative and distributive leadership.

This ensures genuine ownership by the company of all its choreography and allows the dancers to contribute their own ideas reflecting their unique style and creativity.

Freefall Dance Company - 21st Anniversary takes place at Birmingham Hippodrome from Friday 10 – Friday 17 November 2023. With the Exhibition continuing until 4 March 2024. Ticket information, and how to join Freefall go to www.brb.org.uk and www.birminghamhippodrome.com 20

Ability Needs Magazine

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Tanni’s View Baroness Grey-Thompson DBE writes for Ability Needs

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ransport and lack of accessibility is something that I write and post on social media about frequently. I have now included EV charging points in my postings.

Last year I was looking to change my car because of the age and the mileage and started looking at what options might work for me. I then thought that it might be a good idea to check what the charging points looked like. I have never really bothered looking at the accessibility, but it was only when I looked at the nearest charging stations on the motorways around where I live it became clear that there wasn’t much of an option for me.

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Whether it is the height of the cables, or the barriers around them, there were very few that I could actually use. I would love to have someone travel with me wherever I go but that is not the case. That other people have joined in and are starting to notice as well is helpful to an extent, but not that so many charging stations are not that easy to use. In much the same way that I started tweeting about trains to raise the profile amongst non-disabled people about the reality of how it works. I feel the same about EV charging points. It is disappointing that so many seem to have been installed without thinking more about who will use them, but now that they are being rolled out then more has to be done to ensure that they don’t keep making mistakes.

I have raised this with the Government Ability Needs Magazine

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recently (in Parliament we have an option of asking a question that gets a written response) and it seems to be more on the voluntary side that accessibility is taken in to account although there also appear to be guidelines.

Two of the pictures that I posted happened to be from the same company and to be fair they have been in touch for a meeting. But more of a challenge is how can companies start rolling out charging stations and not think about who might use them. The reality is that the deadline to move to electric cars is going to have a big impact on disabled people if they are not able to charge them. Slightly like the debate around plastic straws (I had emails from people suggesting that disabled people were selfish for using them and not understanding that for some it is not vanity but reality), it means that disabled people may be accused of not caring for the environment. And that is before we get on to wheelchair accessible vehicles.

I was reading that in the USA it is not possible to get a WAV which is electric because of where the lift mechanism is and where the battery needs to be. There was one estimate that a vehicle which combined both might cost $30,000 more. That is $30,000 on top of the

vehicle price, which is not and never will be at the cheaper end of the market.

So where does this leave disabled people?

The reality is that it leaves them stuck between a rock and a hard place. Because right now why would I invest the money in a car that I am not sure that I will be able to drive to places that I need to get to? Yes I could go for a hybrid model and that is something that I looked at, but that is ultimately kicking the can down the road for me as well.

There is a lot to consider in terms of the roll out: where sites are placed; the various planning permissions that are required. Should it be the Governments responsibility to take more of a lead? I would say that in this case they should because we all know when something is voluntary around disabled people, it won’t get done or it will be ignored. A bit like all the other times that I had hoped that disability inclusion would be in a better place than it is right now.

If anyone has had any issues with charging a car, good or bad, I would be delighted to hear from you. You can find my email address on the House of Lords website, or a good oldfashioned letter still works. But this is where the voices of disabled people need to count.

Crelling Harnesses Ltd. Tel: 01253 852298

Email: info@crelling.com

www.crelling.com

Crelling Harnesses manufacture a full range of special needs harnesses suitable for use on all kinds of equipment including wheelchairs, buggies, scooters, shower chairs, bathing equipment, stair lifts and seats in cars, buses and aircraft etc.

The vehicle harnesses are designed to be worn in conjunction with the existing safety belts to provide additional postural support and/or to offer a certain degree of restraint when used for those passengers with behavioural problems or learning difficulties.

We make simple belts and full supportive harnesses for all kinds of special needs, including challenging behaviour Ability Needs Magazine

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MOTORHOME LIFT MADE DREAMS COME TRUE

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irgitta Kronqvist, a carriage driving competitor from North Yorkshire and wheelchair user, dreamed of exploring the UK and Europe in her motorhome. Yet was struggling to find a suitable vehicle lift that would give her the freedom to travel afar but also stay within the maximum vehicle legal weight limit.

Birgitta has been a wheelchair user since 1997 due to a horse-riding accident and found it necessary to have a lift fitted to her motorhome. However, she needed to find a lightweight lift as the vehicle was already close to its maximum legal weight and therefore, if she wanted to travel with more than her assistance dog for company, reducing the weight had to be achieved somewhere.

“Birgitta came to us with a really niche issue, but our team were easily able to find a lift solution that worked

Innovations In Accessibility

Always insist on it being a Ricon Lift

Ask your vehicle converter to only fit a Vapor Vapor Ricon Lift – like, for example, the K SERIES. • Automatic folding lift • Unobstructed view for driver and passenger • Easy operation and maintenance • 350KG lift capacity

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Vapor Ricon Europe Ltd. Falcon Works, Meadow Lane, Loughborough, LE11 1HS

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perfectly for her,” said Michael Dickinson, Sales Manager, Vapor Ricon. “The lift that was fitted to her motor home when she purchased it was too heavy and cumbersome, and our Ricon UniLite lift was the perfect solution solving the issue Birgitta had experienced and unlocking the possibility of more travel when permitted to do so.”

The Ricon UniLite lift, a product from the Vapor Ricon range, was fitted in an Elnagh CPT motorhome which is a factory made, disabled access motor home with a wide side door to accommodate the lift.

The lift design offers an aluminium construction and has electric power rather than hydraulic, further reducing the weight. In addition, it has added safety features including rollstops to prevent a wheelchair or scooter inadvertently falling from the platform.

Furthermore, the controls for the lift are handily placed on the handrails for easy, independent operation.

A specialist installation was carried out to ensure the floor and ceiling supports were correctly situated for a motorhome installation and to allow easy access to the vehicle and also around the vehicle when the lift was not in use.

Due to the lift’s ultra, lightweight qualities Birgitta’s ability to travel was no longer compromised in any way. She, and her assistance dog, are now able to welcome a travelling companion, without fear of exceeding the weight limit in her motorhome.

This means that whether she is travelling around England or venturing further afield during the winter to Spain and beyond, Birgitta can be assured that all legal requirements are met and that she can travel safely and with ease of access.

Vapor Ricon is proud to offer a wide range of domestic and commercial products to aid vehicular access for those with limited mobility.

Further information can be found at www.vaporricon.co.uk Ability Needs Magazine

TAKE BACK CONTROL Move safely up and down steps with ease hen it is no longer easy to move up and down a step either inside or outside your home, it’s time for a little bit of help.

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Introducing Motorstep - the British-made motorised step

Independence matters

The cost effective way to help people to manage steps without bulky ramps or expensive building work.

A step between her living area and kitchen meant that Mrs H was reliant on the local authority and her family for food - even a cup of tea. By choosing Motorstep, she has regained her independence, can enjoy a cuppa whenever she chooses, and has saved thousands of pounds in care costs.

Mr and Mrs L love their caravan holidays. When Mr L was no longer able to climb up into the caravan due to his failing health, Motorstep allowed this couple to continue to travel and explore. Today they are out loving life and building happy memories.

Freedom to live life again When Mrs J’s deteriorating health condition meant she could no longer manage the two steps from the garden into her home, she found herself isolated and reliant on others to get out and about. A ramp or wheelchair lift were out of budget and unsightly.

Mrs J chose Motorstep. 75% cheaper to buy and install than other options, it was in place within 2 weeks of placing the order. Today, Mrs J can easily and safely - leave her home or potter in the garden whenever she chooses.

Product pictured: Motorstep MS 600H

MOTORSTEP effortlessly lifting people inside or outside the home.

• • • • • • •

Designed for people with disabilities Free standing - place next to the existing step, no bulky ramps needed!

Weather proof Discreetly folds up for storage: set up in seconds Easy touch control button & strong support frame to make lifting easy and safe Mains or battery powered options Multiple lift heights and weight capacities visit www.motorstep.net for more information

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Independent living solutions www.ncphlexicare.com | 0208586 4600 | Showrooms nationwide 16

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Creating an accessible bathroom

for greater independence Living with a disability can present numerous obstacles in daily living, one of which is the use of a standard bathroom. The typical bathroom layout and features are often not designed with accessibility in mind, making it difficult for those with disabilities or mobility challenges to perform daily tasks independently.

An accessible bathroom is designed to provide accessibility and independence, allowing individuals to perform daily tasks with ease and dignity. N&C Phlexicare delve deeper into the importance of having an accessible bathroom, the key features to consider when designing one, and the multitude of benefits it can bring to individuals and their caregivers.

Creating an accessible bathroom A well-designed, accessible bathroom can greatly enhance the independence and quality of life for people with disabilities. N&C Phlexicare have talked to us about the considerations to make:

Raised height toilets ‘Comfort height’ toilets offer a greater height for a more comfortable experience, especially for wheelchair users or those with back, knee and leg ailments.

Level access showering Consider a low level or level access showering area woith either a tray such as the universal shower tray. USers may opt for a fully tiled wet room using a wet room floor former, such as. premier shower deck for attractive level access showering.

Grab rails One of the most crucial features of an adapted bathroom is the presence of grab bars and handrails. These fixtures provide stability and support, allowing individuals to move around the bathroom safely. Grab rails should be strategically placed near the toilet, shower, and bathtub to assist with sitting, standing, and transferring.

They should be sturdy and easy to grip, and installed at a height that is comfortable for the individual to reach.

Wheelchair accessible For individuals who use a wheelchair, an adapted bathroom should be wheelchair accessible, with enough space for maneuvering and turning. The doorway should be wide enough to accommodate a wheelchair, and there should be ample space around the toilet, sink, and shower for easy wheelchair access. Installing a level access shower with a built-in shower seat can further enhance accessibility.

The basin should be installed to allow a wheelchair to fit underneath.

Consider a lever handle for arthritic users or those with limb loss with the N&C Noir Collection

We offer a comfort height range of toilet suites such as N&C Enthuse

Opt for the N&C Freespace split screen showering for in-home care

Citroën Spacetourer The Citroen SpaceTourer is a great medium-large WAV for people that need a spacious interior.

This vehicle can carry up to six people, offering an inclusive travelling position for the wheelchair passenger, close to the front and between the rear seats.

A low-gradient, lightweight ramp, which folds effortlessly for an unobstructed view through the rear windscreen

Example Seating Plans Key: Original Seat

A lowered flat floor offers excellent headroom and a great line of vision for the wheelchair passenger, with generous space for additional equipment and luggage.

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Grand Connect Flexi The Ford Grand Connect Flexi is a perfect small-medium WAV that delivers on comfort and space.

With the option of two or three rear seats, both conversions are designed to meet specific needs, whether it is additional seating, space for equipment or most importantly an upfront and inclusive position for the wheelchair passenger.

The extensively lowered floor delivers almost 5ft of internal headroom, providing an excellent line of vision for many of the tallest wheelchair passengers.

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Example Seating Plans Key: Original Seat

A low-gradient, lightweight ramp, which folds effortlessly for an unobstructed view through the rear windscreen.

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With comfort and safety features such as:  10” touchscreen including Apple CarPlay and Android Auto

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Ford interior. A low gradient, super-grip, lightweight ramp, folds effortlessly for an unobstructed view through the rear windscreen. The ramp is so quiet in transit you will barely know it’s there!

The perfect vehicle for tall people, large wheelchairs and for people that have a lot of luggage, medical or sports equipment to carry.

We have listened to our customers and now offer a wider, contoured, comfort fit rear seat. Bring on the long journeys!

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The carpeted floor gives added grip, a cosey feel and an eye-catching finish to complement the stylish

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Recently injured patients discover the benefits of sport with WheelPower

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participants this event was the first time away from his September WheelPower, the national the hospital environment, or the first time away from charity for wheelchair sport welcomed 72 the comforts of home, so everything is done to make spinal cord injured patients to its annual Inter the experience as stress free and enjoyable as Spinal Unit Games event. The Games provide an possible. As well as the sport the social element of opportunity for recently injured adults to discover the event is promoted throughout and participants are the life transforming benefits that come from encouraged to share stories and thoughts with others taking part in sport. From the physical health to in a similar situation to them. the emotional wellbeing, sport can be a very Brooke, 17 from Belfast was injured in a car crash powerful tool during their rehabilitation. in April 2022. She broke her spinal cord at C4/5 and The participants travelled to the birthplace of the spent 6 months in hospital following the accident. She Paralympic movement, Stoke Mandeville Stadium is now feeling stronger and ready to ‘say yes’ to more alongside their teammates and physios from Spinal opportunities. “It’s been really good to come over and Units across the United Kingdom. Eleven units took try stuff. I loved the swimming and the table tennis so part in the event and that included teams from the far and the team has all clicked. I hope to carry on National Spinal Injuries Centre in Buckinghamshire, some sports at home and find a local team. Its been the Queen Elizabeth National Spinal Injuries Unit in amazing to meet so many different people and for us Glasgow and Musgrave Park in Belfast. to share our stories. It gives you so much confidence This year’s event also welcomed its first European and comfort to not be the only person in a entrants as the Institut Guttmann from Barcelona wheelchair.” brought a team of four ‘Back to the Origins’ for an The Inter Spinal Unit Games first took place in unforgettable experience. Carles Yepes, Physical 1988 and in the years since education specialist from the have seen many thousands Institut explains further, “It of recently injured people was an honour to visit the discover talents for sport place where the Paralympic that have led some of them movement started and take all the way to the part in the Games. Sir Paralympics. This year Ludwig Guttmann came to WheelPower and Stoke Barcelona in 1965 to open Mandeville also celebrated the first spinal cord injury 75 years of the Paralympic hospital in Spain and we are movement since their proud to be able to carry his The 2023 Jean Stone Trophy for the overall winners went to name today. We had a the team from the National Spinal Injuries Centre at Stoke founder Professor Sir Ludwig Mandeville, Buckinghamshire Guttmann first hosted an wonderful week at Stoke archery tournament between two groups on the lawns Mandeville and thank WheelPower for taking care of of the hospital. The visionary work continues through us this week.”

WheelPower to this very day and the charity is proud Over the course of 3 days the participants were to provide movement, activity and sporting able to try 20 different sports, all whilst being opportunity for patients during their rehabilitation. An supported by qualified coaches and enthusiastic estimated 2,500 people are paralysed each year in the volunteers. The sports included, athletics, tennis, UK and the Games continue to deliver a vital sitting volleyball, bowls, rowing, golf, wheelchair opportunity for everyone who attends. rugby, and handcycling, to name a few. For many The Inter Spinal Games will return in 2024. Find out more about this life changing event at https://www.wheelpower.org.uk/activities/inter-spinal-unit-games/

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Ability Needs Magazine

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More than 115k blind and partially sighted people left without skills to thrive after sight loss

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t whAt can be an extremely traumatic moment in people’s lives, gaps and inconsistencies in the provision of local authority vision rehabilitation services mean people who’ve just been told they’ve lost their sight aren’t getting the support they need to rebuild their lives.

Vision rehabilitation sessions, which must by law be provided by local authorities, offer a vital first line of assistance in supporting blind or partially sighted people to stay in work, to live in their home safely and to get out and about with confidence.

New RNIB research reveals an under-resourced, forgotten system, with a postcode lottery of care across the country – which is also long overdue for reinvention in a changing, digital era. It is also the only social service not monitored by care regulators, meaning there is no effective tracking of the level and quality of service being provided.

Just over half (56 per cent) of blind and partially sighted people surveyed by RNIB had received vision rehabilitation support. More than a third had not, with the remainder saying they were currently awaiting support, and a small number saying they had declined the offer.

If this figure is representative of the total UK adult population who are registered blind and partially sighted, it means at least 115,000 people have been left without the support they’re entitled to. To make matters worse, 58 per cent of those who didn’t receive support said they had not been made aware support was available.

Where the service is being offered, it often doesn’t fully meet people’s needs due to pressures on resources. Less than half of those RNIB questioned were confidently able to move around outdoors (43 per cent) or within the home (42 per cent), and even less felt they could travel independently (28 per cent) after support received. Only 25 per cent felt they could independently complete daily living tasks, and half did not feel vision rehabilitation sufficiently addressed the emotional and psychological impact of sight loss.

The charity is calling for urgent action to make sure blind and partially sighted people are made aware of the services they are entitled to and more understanding of the emotional impact to be considered within local authority pathways; so anyone who initially refuses help is followed up and supported over time.

As people are registered blind or partially sighted,

they should be offered an assessment within 28 days so they have a realistic picture of what their future life will be like and how adaptations can help them continue to live independently; preventing people from quitting their jobs and reducing the impact on mental health.

Services need reform to ensure they are adequately reflecting the emotional needs of those diagnosed, as well as enabling blind and partially sighted people to take advantage of the latest technology to equip them to live in today’s world.

The government need to grasp this issue, ensuring national oversight through the CQC to ensure local authorities are providing a consistent, quality service which people deserve.

RNIB’s full policy recommendations: •

•

•

•

•

Blind and partially sighted people must be made aware of their rights and the services they are entitled to expect.

Local authorities should ensure everyone with a visual impairment is offered a specialist vision rehabilitation assessment within 28 days of initial contact with the local authority.

Local authorities should modernise vision rehabilitation training, to reflect the increased use of technology, enabling people with sight loss to be equipped with digital skills so they can take advantage of the benefits technology can bring.

The UK Government should improve legislation to hold local authorities to account via bodies such as the CQC. CQC should have its remit extended to include rehabilitation services.

The UK Government should commission the National Institute for Health and Care Excellence to develop guidelines and quality standards, with performance data published annually by each local authority.

For more information visit www.rnib.org.uk 32 26

Ability Needs Magazine

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AN_p34_p35_eddiepea_40+44_AN107_Long.QXD 28/09/2023 09:36 Page 1

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Eddie T

The free lunch?

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T my age one has lots of time to think! Health warning….I have been doing lots of thinking lately. There was a recent incident which led me to ruminate on the word FREE and the subsequent implications of its use.

We received one of those email messages at home. I am sure you will recognise it. “You have won a FREE week’s holiday in the sunny Mediterranean”.

No strings attached. FREE flights, and a week in the “Deluxe, Paradise Hotel” overlooking the sea. The pictures were rather enticing and even when I read the small print (it was very small) I was tempted.

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That “very small print” informed me that while staying in the brand new “state of the art Deluxe Paradise Hotel” we would enjoy a brief hour or two with “one of our highly knowledgeable, holiday hosts”. These chaps would tell us all about the local towns and traditions. They would explain how easy it would be to own our own apartment in this part of paradise. There was absolutely no obligation to sign up for anything, but the benefits of ownership would open the door to a lifetime of fabulous experiences.

Now being a man of the world and a chap who has spent many years in sales and marketing, I thought I could manage an hour or so with these fellows and still resist their sumptuous offer.

This was obviously a well-structured sales campaign run by an international corporation. My issue here was the offer of a FREE holiday. It would

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be FREE for anyone happy to refute the offers of their highly trained “hosts”, but they hoped that enough people would buy a week or more in paradise to make their investment profitable.

We all see similar marketing strategies everywhere, every day. “Buy one get one FREE” – really? Surely, we don’t really think that anything is truly FREE. Surely most of us realise that selling stuff is a very competitive activity. Whether it is a chocolate bar, a holiday, or a car, using that single word FREE is intended to turn the head of any prospective buyer.

Business is tough. The awful Covid pandemic had huge repercussions all over the world.

Supply chains are still disrupted. In addition, the war in Ukraine is having profound effects on economies everywhere. The subsequent disruption is extreme. With technology developing faster and smarter, almost by the hour, selling a product means ever more ingenuity is required to gain that market share. Being given anything for FREE is obviously a powerful motivator and I thought hard on the use of the word in relation to our NHS. However it is presented, a product needs to be of value, and it is this subject of value that is of national concern. Our beloved NHS is struggling to provide us all with value for money. At this time there are over 7 million of us waiting for important treatment. Junior

Eddie Peacock has worked in the mobility industry for “rather a long time”. He enjoyed a challenging career having started by selling wheelchairs, scooters and stairlifts for Sunrise Medical, eventually working his way to the position of UK sales manager. After a period as a self-employed consultant he was invited to manage movingpeople.net, then Handicare Ltd, in

Ability Needs Magazine

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Peacock N

T

!

explained that I doctors and consultants are taking strike action. should go to my Turmoil is everywhere. Bluntly, the service is in crisis. local government When the NHS was created back in 1948, Britain offices where, on was a very different place. It is worth a moment’s production of her thought to compare our country then to our country invoice, I would be now. Our population was around 48 million and we refunded 3/4 of were reeling from the effects of a World War. Food the amount paid. Being a child of the UK NHS, I was rationed and many of our cities were still bearing B found this quite a surprise. the scars of the conflict. Healthcare was I had never been asked to pay for a doctor`s comparatively basic. Average lifespan was 65 for attentions. On reflection I realised that, crucially, this men and 71 for women. process made a patient aware of the cost of both the Now, in 2023, we have a population estimated to be approaching 70 million, medical science has doctor`s fee and the drugs involved. I cheerfully obeyed the system and collected my refund a week progressed at an amazing rate. As a result, the or so later. average lifespan is 78 for men and 82 for women*.

These statistics illustrate the harsh challenge for our I suggest that we here in the UK have created a blissful ignorance of the real cost of these services.

NHS. As a result, we have looked on this as a FREE The basic ethos of our NHS is that it is “FREE at service. The repercussions are deep. Now, in these the point of use”. My conjecture is that for the past I hadwith never askedchallenging to pay for a doctor`s attentions. extremely economic times we are finding On reflection 75 years, we have “brainwashed” ourselves this been word FREE. Whilst I am sure that our c NHS was once ourselves looking at our health service and its an enviable system admired world-wide, technology failings. Is this not a time to look closely at the whole structure? and population growth have meant that it simply Other developed western countries have systems cannot exist in its original form. that work effectively. Why do we not look and learn Back in the last century (I am that old) I lived in Australia. Whilst I was there, they introduced their from them? The NHS is still a splendid concept version of a National Health Service. I once needed containing some wonderfully dedicated people and to visit a doctor and experienced something of a we need them to be happy working for us.

This article has no political bias and I have no shock at the end of his consultation. He calmly told more right to make judgements than anyone else. I me of the fee for his expertise and the price of the suggest, however, that this should be the moment drugs he had prescribed. I then moved to the next when we stop, think, and make some long-term room where his admin` lady collected the money. She decisions regarding this fundamental national service. the UK. In recent years he held the post of It is a sad reality to note that nothing is FREE. By Marketing Manager for Mobility which also the way, we are not going to the “Deluxe, Paradise involved supporting and working with the Hotel” this winter, or any time soon……. * Office of National Statistics BHTA.

He has now retired and is looking forward to finding the time to perform useful tasks in the industry, playing drums in a blues band, travelling and most important, being silly with his grandchildren.

Ability Needs Magazine

To contact Eddie send an email to abilityneeds@btinternet.com. or write to him at Ability Needs, 7 Montgomerie Terrace, Ayr, KA7 1JL 35

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Northern to trial British Sign Language announcements on trains

orthern is set to interpret its announcements into British Sign Language (BSL) on some of its services.

Passengers will first see the new BSL visuals on trains between Manchester Victoria and Leeds to interpret information such as station announcements.

Census data in 2021 showed that in addition to spoken languages, BSL was the main language of 22,000 people.

Marc Silverwood, onboard systems manager at Northern, said: “We know that rail travel can be daunting for anyone with specific needs, and I really hope this makes a difference to give people confidence to travel by rail.

“International Day of Sign Languages on 23 September has really driven this home to us – we want to make a difference to our customers and provide for them as needed.”

Northern is looking for partners – charities, organisations or experts who could help provide sign language interpreters for the project.

The train operator aims to have the trial up and running

but the end of the year.

Marc added: “We’re looking out for people who could help with this scheme to interpret our announcements and who could share their expertise with us – so we can create the best possible service for our BSL passengers.”

Northern is the second largest train operator in the UK, with 2,500 services a day to more than 500 stations across the North of England.

About Northern Northern is the second largest train operator in the UK. We provide 2,500 local and regional services every day to more than 500 stations across the North of England. In total, more than 100 million passenger journeys are made on our network each year.

We have recently introduced 100 brand new trains as part of a £500 million investment in regional rail. Our aim is to offer customers 'a better way to go' with further improvements across the network including the renovation of station facilities, better lighting, upgraded car parks and enhanced CCTV coverage

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For more information visit www.northernrailway.co.uk

Take part in the Euan’s Guide Access Survey today!

OW in its ninth year, the Euan’s Guide Access Survey is the largest and longestrunning survey of its kind. It provides a picture of disabled access in the UK, looking at whether accessibility is getting better or worse compared to previous years. Taking part is a great way to have your voice heard and make a positive difference to disabled people’s lives.

The 2023 survey topics include disabled access in general at all types of venues, from pubs to castles and stations, as well as the essential matter of accessible toilets and parking. This year’s survey covers the cost-of-living crisis for a second year. Have your say at www.EuansGuide.com/AccessSurvey Last year’s survey received national press coverage including The Guardian, The Huffington Post, and The Independent to name a few. Euan’s Guide, their volunteers, and their work have been featured across news media including Channel 5, Good Morning Britain, STV, and BBC Radio.

By taking part in the 2023 Access Survey your voice will be heard. Together we can make a difference to the lives of disabled people, and we can continue to work on improving disabled access at venues across the UK and beyond.

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WHAT IS EUAN’S GUIDE? Euan’s Guide is the award-winning disabled access charity best known for EuansGuide.com, the disabled access review website. The website holds thousands of disabled access reviews, written by disabled people and their friends, and is an invaluable tool for many disabled people. Euan’s Guide also make tens of thousands of accessible toilets safer through the Red Cord Card scheme, as well as running the UK’s largest and longest-running Access Survey with the support of Motability Operations.

The founder of Euan’s Guide, Euan MacDonald, is keen to hear from disabled people. He said: “Our Access Survey is extremely important in establishing how disabled people, their families, friends and carers feel about disabled access through their own lived experiences, and how the cost of living crisis is disproportionately affecting disabled people.”

Ability Needs Magazine

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What the automotive industry can learn from the CEO leading the way to electric vehicles for 700,000 disabled people

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ndrew Miller, chief executive of Motability Operations, used his first keynote speech in September to show how the lived experience of its 700,000 disabled customers should be used in making a switch to electric vehicles that works for everyone.

Addressing an audience of senior industry leaders and government representatives at the British Vehicle Rental & Leasing Association’s (BVLRA) Fleets in Charge conference, Andrew highlighted the company’s investment and innovation to Andrew Miller transition the UK’s largest fleet to electric as it tackles the challenges of accessibility, availability and affordability.

Motability Operations is the commercial company that runs the Motability Scheme, leasing cars, powered wheelchairs and scooters to help disabled people and their families access independent mobility.

As the government’s ban on the sale of all new petrol and diesel cars approaches, Andrew spoke about how Motability Operations had already moved more than 34,000 people into EVs and currently buys more than 7% of all new electric vehicles in the UK, but explained there was so much more to do to. He described how the organisation’s unique customer base gives crucial insight: “Over our entire customer base, not just those in EVs, nearly half live on less than £20,000 a year, and only about half have off-street parking,” said Andrew.

“When we asked our customers recently, 57% gave the lack of public charge points as a reason for not switching to electric, and of those 34,000 who are in EVs already, nine out of ten said their experience of charging publicly was poor.”

Andrew explained how this insight should be used to ensure a truly inclusive transition that leaves no one behind, and how the company is focussed on helping its customers overcome barriers.

Outlining how the company’s operating model works, reinvesting every penny of profit back into the scheme, Andrew revealed that £300m had been set aside “to make EVs more affordable and accessible … we’ve currently spent close to half of this with more to come.” He also outlined over £13m of investment in installing more than 25,000 home chargers for customers.

But the game changer for Andrew and for all of the Motability Scheme’s 700,000 customers, is public charging. Challenges such as charging points at unsuitable heights for wheelchair users, heavy charging cables, lack of space to park and the height of kerbs all put barriers in the way. Range anxiety is a real concern and it’s made even more so when public infrastructure isn’t accessible.

Andrew talked about the innovative pilots the company is running, such as an app that collects real time, user generated reviews of public chargers, and a card that consolidates different providers and payment methods. Another pilot is taking place as part of Europe’s biggest trial of vehicle-to-home technology that uses a car’s battery to power a home, or sells energy back to the grid. “Our job is to find solutions,” said Andrew.

Wrapping up his speech, Andrew touched on the 33,000 disabled people who rely on wheelchair accessible vehicles (WAVs) and for whom there is currently no electric design solution. Motability Operations is working with industry to solve the issue, as Andrew explained, “it is too important to get wrong.”

“We are acutely aware of our responsibility with the life-changing Motability Scheme and the need to ensure its protection and sustainability for generations to come,” Andrew concluded. “The switch to EVs is probably the most significant shift we’ve ever seen.

“Almost everyone will temporarily or permanently experience disability at some point in their life. Everyone will benefit from keeping accessibility at the heart of the EV transition.”

For more information on the Motability Scheme visit www.motability.co.uk

Ability Needs Magazine

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INDUSTRY INSIGHT

Angus Long

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Time to end the unaccountability of hospital managers

INCE my last column there have been a few grim headlines. The Air Traffic Control debacle that stranded thousands of people at the busiest time of the summer holidays being one. The dodgy bricks that have closed many schools just as the autumn term starts being another. However, the worst, in my view, was the news of the trial and conviction of Neonatal nurse Lucy Letby for the murder of seven babies and the attem pted murder of six others at the Countess of Chester hospital. She was given a whole life sentence.

However, disturbing reports during the trial revealed that, despite several alerts from a number of doctors and clinical staff concerned over Letby’s behaviour, the warnings were ignored by senior managers.

Not only was she not immediately suspended while investigations took place, some of those who raised 38

concerns were ordered to apologise to her.

Letby’s heinous murders were bad enough, but it seems had the managers acted on the concerns of the doctors sooner some of those babies may not have died.

This is unbelievable!

Trust managers receive very generous remuneration packages to manage hospitals.

Indeed, Tony Chambers, the then CEO of the Countess of Chester hospital trust, earned £160,000 a year with the Trust’s Medical Director, Ian Harvey, on £175,000 and Director of Nursing, Alison Kelly, on £130,000.

There’s nothing intrinsically wrong in offering senior people, in charge of large organisations, a reasonable remuneration package. The key, though, is that in return for handsome pay and perks, these senior managers need to be fully accountable and responsible for the organisations they are paid to run. Otherwise, what’s the point of their position? It is simply unacceptable that they Ability Needs Magazine

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never seem to face full and proper accountability for their calamitous conduct.

I’ve written before about bad healthcare management that has resulted in tragic consequences. The tragic 52 baby deaths at the Telford and Shrewsbury hospital maternity department, the 1,200 patients that died in filthy, bug infected, wards in the Mid Staffordshire hospital, and the 25 people who died from a policy to delay dispatch of ambulances after people called the emergency helpline being three of the worst cases in recent years. With all of these, there was the usual waste of money and resources on public enquiries that simply revealed the blinking obvious, added more lessons neverto-be-learned and left those responsible simply issuing an apology and carrying on, with not one of them facing any proper accountability.

Thankfully, it seems the anger over the Letby baby murders appears to have stirred calls for senior hospital managers to be regulated and face better accountability. Let’s hope so.

Frankly, in my view, managers who ignored the very clear warnings quite simply have blood on their hands, and I feel the only proper outcome should be for them to be summarily dismissed, with full loss of pay and pension, and banned from working in the public sector for life. Nothing less would be justice for those who died.

Many managers have defended their positions by saying most of the problems are down to other junior managers and staff and that they can’t be everywhere all of the time.

It’s not fair to claim that just because an NHS Trust is a big organisation and individual trust managers are far removed from the day-today operations of the hospitals, they somehow cannot be held accountable. Sorry, Ability Needs Magazine

but that’s what being a boss is all about; it’s what bosses are paid to do. If managers don’t know what's going on or fail to put into place a robust system of managerial oversight, then that's their look out.

Managers are paid to “administer and supervise”. If the ward staff are not performing up to standard, then they are managed. Directors have a range of tools and processes in place to ensure personnel, under their charge, are working properly and to an acceptable standard. Simple, uncomplicated things like appraisals, performance monitoring and inspections. If some individuals are performing below standard then, depending upon the circumstances, there are a number of remedial options available, such as additional training, job re-assessment and of course disciplinary action.

If the owner and manager of a private care home can be prosecuted for corporate manslaughter and sentenced to three years in prison after a resident in their care home died from poor care, then why can’t the trust managers of the Mid Staffordshire Trust, the Telford and Shrewsbury Trust and the Countess of Chester hospital?

Seems our public sector managers want all the pay, glory and credit when things go well, but none of the blame or responsibility when things go wrong. Oh no, for them the ‘buck stops with someone else.’ Well, it seems Rishi Sunak has promised to end this. Let’s hope it’s a promise he goes on to actually keep because we can’t have one rule for the private sector and one for the public, since it will lead to division and conflict.

Angus Long is owner of Writers4U Ltd 39

AN_p40-41- mencap_10_AN406_IL_Scotland.QXD 28/09/2023 15:42 Page 1

Leading charities urge the Prime Minister to end the inhumane imprisonment of disabled people before time runs out

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he National Autistic Society and Mencap are calling on Rishi Sunak to reform outdated mental health law, as thousands of autistic people and people with learning disabilities remain stuck in mental health hospitals.

The Government published its draft Mental Health Bill last year, which proposed vital changes to the Mental Health Act. The bill is a chance to change outdated laws that define autism and learning disabilities as mental health conditions, and to introduce better protection for autistic people and people with learning disabilities.

Currently, 92% of the 2,000 autistic people and people with a learning disability in mental health units are detained under the Mental Health Act.1 The bill was seen as a huge step forward in the campaign to stop the scandal of autistic people and people with learning disabilities being wrongly detained in mental health hospitals.

But now the Government is running out of time to introduce its Mental Health Bill so these important changes can become law ahead of the next general election. Dropping the bill would mean breaking the Conservative Party’s manifesto promise to “… make it easier for people with learning disabilities and autism to be discharged from hospital and improve how they are treated in law.”

According to Assuring Transformation NHS Digital data, in August 2023 2,040 autistic people and people with learning disabilities are in inpatient mental health hospitals in England and 1,325 (65%) of these people are autistic. There are 200 autistic people or people with learning disabilities who are under 18, and 95 of these are autistic.

Many of these people are stuck in mental health hospitals without access to appropriate support, in environments that lead to avoidable physical and mental deterioration. They are often far away from their homes and loved ones, with the average length of stay being more than five years. Furthermore, we know people are being subjected to overmedication, restraint, isolation and abuse in these settings.

NHS data shows that since the earlier draft bill was introduced over 450 days ago, 2,135 autistic people or people with learning disabilities have been admitted to hospital – an average of around four people per day. Research by Mencap shows the Government’s commitment to reduce inpatient numbers by 50% by March 2024 will not be achieved until November 2028 at the earliest at the current pace of change.

The recent NHS Safe and Wellbeing Review found that more than half (57%) of autistic people and people with learning disabilities were in hospitals away from their homes and families, while 41% of people did not need to be in hospital and their needs could be met in the community. Additionally, analysis by the National Autistic Society shows that, instead of decreasing since government targets were set, the proportion of autistic people in mental health hospitals has nearly doubled – from 35% in 2015 to 65% now.

The Government’s promised changes to the Mental Health Act are essential to achieve, and go beyond, the planned 50% reduction in inpatient numbers that was set out in the NHS Long Term Plan and recommitted to in the Building the Right Support Action Plan. The Mental Health Bill must be included in the King’s Speech on November 7 2023.

Leo Andrade is mother to son Stephen, 28, who has a learning disability and is autistic. Stephen was detained under the Mental Health Act for over six years, against the wishes of his family. Leo is campaigning alongside Mencap and the National Autistic Society to ensure autistic people and people with learning disabilities can no longer be wrongly locked up.

Leo Andrade said: “My son Stephen has a learning disability and autism. Throughout his whole life it has been a battle to get the support that he needs. In 2013 the right support broke down and he was sectioned under the Mental Health Act. He was Leo with a photo of her son Stephen, 28

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locked away in a mental health hospital more than 70 miles from our home and the people who love him most. Stephen was over-medicated, restrained and traumatised in the hospital. I battled for years to get him out.

“Stephen doesn’t have a mental health condition so should never have been detained in a mental health hospital. What my son desperately needed was the right environment and support to help him to be happy and enjoy his life in his community. He was failed by the system.

“This is the experience of too many other people and their families. This is wrong and it is time to act.”

Alison Rodgers, mother of Adam, 31, who is currently an inpatient under the Mental Health Act, said: “Adam has spent half of his life in hospital.

Today he’s still detained in hospital, and seems no closer to coming out, instead he has gone deeper and deeper into the system. He has a learning disability, autism and ADHD. “Staff don't understand his autism, ADHD and sensory issues. They just see him as having 'challenging behaviour’ rather than that he is communicating he is upset. I have tried everything to bring him out into the community, but I'm not listened to. He's not a threat to anyone. He should have been Alison with her son Adam, 31 given the right support package in the community instead, not sent to a high secure hospital. He has deteriorated in this environment. It is the wrong place to meet his needs.”

Tim Nicholls, Head of Influencing and Research at the National Autistic Society, said: “This is one of the greatest human rights crises of our generation – and it must end now. Autism is not a mental health condition and mental health hospitals are not the right place for the vast majority of autistic people. Yet we’ve seen countless harrowing examples of people being locked away in seclusion and subjected to abuse in these settings.

“The trauma caused to those who are wrongly detained in hospitals, scared and alone without the right support they need, is unimaginable – with a devastating and long-lasting impact on their physical and mental health.

“The Government must urgently bring the Mental Health Bill into law so that autism is no longer defined as a “mental disorder”. But time is running out. We’re calling on as many people as possible to sign our open letter and tell Rishi Sunak that now is the Time to Act – this crisis cannot be allowed to continue.”

Dan Scorer, Head of Policy and Public Affairs at Mencap, said: “It is unacceptable that in the 21st century the law allows for people with a learning disability and autistic people to be locked up in mental health hospitals for years on end when they don't have a mental health condition.

“Being held in a mental health institution without a mental health condition is both wrong and deeply damaging and traumatic for people with a learning disability and their families. “We need to see investment in early intervention and better community support to prevent admission in the first place.

“Reforming this legislation is a crucial step so that people with a learning disability can no longer be institutionalised. Every delay in reforming the Act is another day where people are being wrongly detained.

It is essential that the Bill be brought forward as a matter of urgency."

The National Autistic Society and Mencap are calling on the Government to bring the draft Mental Health Act Bill into law to ensure: Autistic people and people with learning disabilities cannot be detained in a mental health hospital under Section 3 of the Mental Health Act solely on the basis of having a learning disability or autism (without a co-occurring mental health condition).

There is a strong duty to provide community services to autistic people and people with a learning disability to prevent them from reaching crisis point in the first place, and ensure those in hospital can be discharged in a timely way.

Recommendations from Care, Education and Treatment Review actions are made enforceable, so people can be discharged from hospitals sooner.

• • •

To sign the open letter, visit the websites of the National Autistic Society (https://www.autism.org.uk/what-we-do/campaign/mental-health/time-to-act) and Mencap (https://www.mencap.org.uk/get-involved/campaign-mencap/transforming-care-homes-not-hospitals)

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AN_p42 capability_10_AN406_IL_Scotland.QXD 28/09/2023 18:58 Page 1

Innovative technology features in care facility mock-up

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Charity unveils concept apartment with glimpses of life-changing installations

rogressive technology to allow residents to influence their environment with assistive controls such as eye-gaze technology, wireless switches and voice command have been installed in a concept apartment built in a theatre.

Smart home designer Function Control has provided its expertise to adapt a mock-up apartment that is helping Capability Scotland to deliver sector-leading quality of living for those with complex needs.

The charity recently launched the ‘Our Inclusive Community Project’, which includes ambitious plans for a new £28 million facility at Bertha Park in Perth. The concept apartment, located within a theatre in its nearby Upper Springland site, is a key element to one of Scotland’s largest ever co-production processes.

Capability Scotland has used the mock-up to assess layout, flow, and access prior to the cutting-edge tech installation. Hundreds of items of feedback have been received, including from the 60 residents at Upper Springland who would be in line to move to Bertha Park.

It is now undergoing a further phase of coproduction that is focused on the use of advanced technology that could revolutionise life for those with a broad range of disabilities, from mobility issues to learning difficulties.

Nick Laing, Director of Function Control said: “Every resident has different needs and requirements, and so it is important that we develop a system that can assist all.

“We have implemented some of the demo technology in the mock-up apartment that allows us to learn from the system and get feedback from those who will be using it.

“Each room in the new facility will be adaptable to the individual. Staff will also be able to track key statistics from each apartment to help the residents, such as the amount of time the resident has spent on their own, room temperature, use of the medical cupboard and if windows or doors have been left open.”

The mock-up features lighting and blind control, as well as motorised windows and temperature control. It’s hoped the technology will give residents more influence on their own space while equipping care workers with better resources to carry out their duties.

Other features Function Control intend to implement at Bertha Park include apparatus that will monitor air quality levels and data showing which rooms get used at the facility most frequently in order to maximise the use of space.

Circadian lighting, which is designed to mimic the hours of the day and has been known to positively 42

Nick Laing, Function Control, showing a resident how to use the commands

impact physical and mental health is being considered for the common areas at Bertha Park.

By engaging in co-production, residents and staff have been able to input their ideas and suggestions to Capability Scotland and Function Control. The feedback has allowed the designers to understand how the smallest details can have a big impact.

Naomi Smith, Co-Production Lead with Capability Scotland, said: “The addition of Function Control’s technology demonstrations marks the next exciting step in this ground-breaking project.

“Our ambition is to build the UK’s best enabling and inclusive accommodation for people with severe and complex needs, at the heart of the Bertha Park village community.“ Capability Scotland’s Upper Springland site on Isla Road has four registered services and offers residential and respite care to adults with physical and learning disabilities. There is also a day service, as well as a hydrotherapy pool, accessible gym, theatre, and walled gardens.

However, while the quality of care is outstanding, the site is now more than 40-years-old and becoming more difficult to maintain. Climate change also means it faces an increasing flood risk from the River Tay – and the charity wants to create state of the art new flagship services.

For more information on Capability Scotland’s ambitions at Bertha Park, please visit: https://www.capability.scot/about/bertha-park Ability Needs Magazine

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#RightsOnFlights Takes to the House of Commons

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Christopher Wood MBE

HURSDAY 14th September will be marked as an historic day for accessible air travel. The #RightsOnFlights quartet that is

Roberto Castigliano MBE, Sophie Morgan, Josh Wintersgill and Christopher Wood MBE (author) took the campaign by way of a launch event at the historical setting of the House of Commons. An audience of MP’s, airlines, policy experts, advocates and supporters listened to the speakers who eloquently outlined their strategy to enable further legislation and better infrastructure on aircraft.

Lord David Blunkett took to the stage first and outlined the constant challenges faced by the community when travelling by air - Lord Blunkett is no stranger to his own challenges when traveling by air.

TV Presenter Sophie Morgan announced her new proposal at the House of Commons, Westminster to urge the government to pass more robust laws and changes to protect Disabled travellers. The reforms included plans for the Civil Aviation Authority {CAA} to be able to issue financial penalties to airlines that fail in their obligations to disabled travellers.

The new Rights on Flights legislation “Assisted Air Travel Act” includes: 1. Institution of the Complaint Resolution Official to handle situations affecting disabled people as they arise.

2. The transportation of mobility aids must have clear cut processes and procedures.

3. Legal obligations for the accessibility of airports and aeroplanes 4. A new way of funding free transport of carers where one is needed to comply with safety rules.

5. New fast-tracked process and procedure to address damaged or lost mobility aids.

6. A tiered system of enforcement tools also includes direct compensation to passengers for minor violations.

7. The decision-making process of airport managing bodies and airlines must have greater input from the disabled community.

Kelly Buckland from the Us Department of Transport was the special guest, he outlined some of the forthcoming proposals from the US Transport Secretary Pete Buttigieg. One of those being the loss or damage of wheelchairs will become a violation, with fiscal implications much more substantial than seen before. There is no doubt the US will lead the way in its reforms, people in the US use air travel like we use buses and trains, it is therefore considered an epidemic with numerous wheelchairs being broken or damaged on a daily basis.

It is essential that this #RightsOnFlights quartet engage directly with the US and share reforms in best practice. It is only by utilising this well documented ‘special relationship’ that there can be a global shift towards dignity and safety for its millions of disabled travellers.

Despite Brexit (don’t get me started!) we are all very much European albeit the quartet are UK citizens, we do represent a euro objective. Indeed, air travel is global, so the ambition is to trigger much change across this wonderful planet of which we are the guardians.

No one has ever put on such an audacious event right in the heart of those that should be doing more, alas time and time again they do not see accessible air travel as a priority in government. #RightsOnFlights want to work and help those people that can initiate change make that happen.

For further information visit: www.flyingdisabled.org.uk and www.air4all.net

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Charitable trust gives over £3,500 to support adults with learning disabilities

West Midlands-based learning disability charity has enhanced the lives of more than 40 people, providing funding worth more than £3,500.

Select Lifestyles Charitable Trust, set up by leading independent care provider Select Lifestyles in early 2022, provides financial, emotional, and social support to adults with learning disabilities.

Since the charity’s inception, it has fulfilled 15 applications to provide vulnerable adults with financial support for essentials such as home and garden furnishings, clothing, transport, and recreational activities.

These applications have seen the charity provide funding totalling £3,703, directly impacting the lives of 46 people.

One recipient commented: “Select Lifestyles Charitable Trust helped me to spend time with my family at Christmas for the first time since before the Covid pandemic, by providing funding for my transport home. The process was simple, and the team were helpful with my request every step of the way.”

Nick Horton, Managing Director at Select Lifestyles,

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added: “Through Select Lifestyles Charitable Trust, we aim to enable those with learning disabilities to live the life they want with no restrictions.

We strive to empower individuals to become as independent as possible and it means a lot to us to be able to provide them with the support they need to do this.

“The charity also brings the community together and we have several upcoming events and activities in the calendar. These include a Christmas card competition and a Bonfire Night event, details of which can be found on our social media channels.”

In April 2024, 16 team members from Select Lifestyles will also be fundraising by taking part in the Wolf Run – a 10-kilometre obstacle-based challenge which includes walking, running, swimming and climbing. More information can be found at https://gofund.me/9e21bc1c.

Applications for Select Lifestyles Charitable Trust funding are open to anyone with learning disabilities and can be made through a Gift Request Form. Forms are available at www.selectlifestyles.charity or by emailing info@selectlifestyles.charity.

For more information on Select Lifestyles, please visit www.selectlifestyles.co.uk.

5 Reasons You Need the AcerPure Air Purifier in Your Home This Autumn

s we head into the autumn season and the air outside becomes crisp, it's important to keep the air inside your home clean and fresh. Acer understands the importance of maintaining good indoor air quality, which is why they are offering one year’s worth of free air filters for customers who purchase an AcerPure Air Purifier this October.

Here are five reasons why you need the AcerPure Air Purifier in your home this autumn: 1. Improves Indoor Air Quality: The AcerPure Air Purifier is equipped with advanced filtration technology that effectively removes airborne pollutants such as dust, pet dander, pollen, and smoke. Its HEPA filter is capable of capturing particles as small as 0.3 microns, ensuring that the air you breathe is clean and free from harmful allergens.

2. Reduces Allergy Symptoms: Autumn is notorious for triggering allergies, but with the AcerPure Air Purifier, you can minimize the impact of seasonal allergens. By removing airborne allergens from your indoor environment, the AcerPure Air Purifier helps reduce symptoms such as sneezing, coughing, and itchy eyes, allowing you to enjoy the season to the fullest.

3. Eliminates Odours: As the weather gets cooler, we tend to spend more time indoors. The AcerPure Air Purifier features an activated carbon filter that effectively eliminates unpleasant odours caused by cooking, pets,

and other household activities 4. Promotes Better Sleep: Good sleep is essential for overall well-being. The AcerPure Air Purifier operates quietly and has a night mode function, allowing you to sleep peacefully while it works silently in the background to clean the air 5. Stylish and Portable Design: The AcerPure Air Purifier has a sleek and modern design that complements any home decor. Its compact size makes it easy to move around and place in different rooms, ensuring that every corner of your home has clean and purified air.

Don't let allergies and poor air quality affect your autumn season. Invest in the AcerPure Air Purifier and experience the benefits of clean and fresh air in your home.

For more information about the AcerPure Air Purifier, visit https://uk-offers.acer.com/air-purifiers-promotions/ or contact your local retailer. Available from Amazon, AO.com, Robert Dyas, and Currys – prices start from £ 249 44

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Majority of disabled people delay contacting essential service providers by more than two months

EARLY three-quarters (73%) of disabled people have delayed contacting an essential service provider because it seemed too daunting to them, meaning they could be missing out on much-needed support and important information.

Experian's research reveals that disabled people, on average, wait more than two months 82 days - before contacting a provider. They cited feeling emotionally drained (37%), anxious (34%) and demoralised (27%) after interactions with organisations.

The delay is having a detrimental impact on people’s lives, with most disabled people surveyed (52%) saying they would have spent the time resting or sleeping without anxiety if they could get the time back. Despite this less than a fifth (19%) of people with access needs have requested support from service providers.

Exploring behaviour around financial services more broadly, people with access requirements are also less likely to switch service providers across multiple sectors – from credit cards to savings accounts, energy suppliers, and TV subscriptions.

For instance, only 28% have swapped credit cards, compared to 36% for those people without any access needs. Almost one third (28%) of disabled people polled said their finances had been negatively impacted by not being able to easily contact essential services.

The Financial Conduct Authority (FCA) has found that an estimated 7.4 million people** have unsuccessfully attempted to contact one or more of their service providers, with the most vulnerable in society most likely to struggle. To help, Experian has launched Support Hub in collaboration with some of the country’s largest companies including HSBC UK, Nationwide Building Society, Tesco Bank, consumer credit provider NewDay, Cooperative Bank and Ovo. It is the culmination of more than three years’ work between Experian, the founding partners and

accessibility experts. Support Hub pilot offers a single one-stop portal for consumers to tell multiple businesses how they need to be contacted and what support they need to access their service.

This could include preferred method of communication such as letter, telephone, or email, or other requirements such as needing a longer appointment, or being accompanied by another adult to assist them.

Crucially, it does not require consumers to disclose their disability – only the support they require from the organisations they use. Users have complete control over which organisations they share with, and what needs they share, and can remove their permission at any time.

When surveyed about the solution, 60% said they would like to use a service that informs multiple suppliers about their needs.

José Luiz Rossi, Managing Director, Experian UK&I, said: “We need to remove the frustration and anxiety people feel when contacting service providers, and we have to build solutions and products that are accessible for everyone. The world is not built for minority groups, and we often expect people with disabilities to conform to typical expectations.

“We’ve built Support Hub with partners from the disabled community and our founding members, so we can help level the communications playing field for people with access requirements.

“This is a service that has been made with inclusivity in mind, allowing people to log their information, controlling what is shared and with who, so that multiple organisations know in advance how they should communicate with a customer – whether that be letters through the post in braille – or offer additional support for face-toface appointments.”

People can use Support Hub by visiting: https://supporthub.experian.co.uk/

Learn more about Experian at www.experianplc.com or visit our global content hub at our global news blog for the latest news and insights from the Group.

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Project SEB – Solutions for deaf racing drivers Team BRIT, the world’s only competitive team of all-disabled racing drivers, has launched its latest project, to develop innovative solutions to support Deaf drivers into racing.

Image credit: Jakob Ebrey

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roject SEB – ‘Strive, Empower, Belong’ – was named after the son of Project Manager Clare Pagano who worked with the team earlier this year, to kick off this groundbreaking initiative. Clare’s son lives with CHARGE Syndrome and is deaf as a result of the condition.

The team is now working with the UK’s only two

Deaf drivers, Caleb McDuff and Sarah Thompson, to understand the limitations in place within the motorsport industry for the Deaf racing community and to create bespoke solutions.

Sarah Thompson

Why? Being a Deaf racing driver comes with challenges that are completely unique. people who are - Many Deaf wear cochlear implants which turn sounds

Caleb McDuff

into electrical signals and send them to the cochlear in the inner ear. From there, the signals travel to the brain and are heard as sound.

Standard racing helmets don’t have the room or design for cochlear implants to be worn. As a result, Caleb chooses to race in silence without his implants. between a race crew and a racing - Communication driver is essential in every race. A solution is

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needed which can be integrated into the car without distracting the driver and without requiring extensive hand movements.

Deaf driver receives less than half the sensory - Aexperience a hearing driver receives when racing, we’re looking at what systems could work to replicate these experiences currently being lost.

Team BRIT is now working with partners including motorsport communications experts MRTC, BAE Systems and Real Equipe to develop solutions. These include exploring a ‘heads up display’ situated on the helmet visor and a driver response tool on the steering wheel that flips through a list of pre-set messages.

Team Founder Dave Player explains: “Currently, Deaf racing drivers face a massive disadvantage in motor

racing due to the challenges they face when communicating with the pit crew and with regards to the sensory experiences of the environment in and around the car. Deaf people may also choose to wear cochlear implants which enable sound to be heard to some degree, but these cannot fit under standard race helmets. Caleb for example, races in silence because of this.

“Although there are a number of technical solutions to parts of the overall challenge, nothing is truly enabling equal access to motorsport for Deaf people. There is a compromise with every current option.

“We’re now reaching out to key partners such as UK Deaf Sport to create a way forward with the project, and will be looking to secure the support of sponsors that wish to help us create something truly revolutionary for racing.”

Anyone looking to learn more about the project should contact dave@teambrit.co.uk

Team BRIT’s year so far It's been a huge year of achievement and change for the team, with the biggest number of drivers fielded and championships entered to date.

In a major new move, the team entered the Citroen C1 Series, offering rookie level racing for disabled drivers completely new to the sport. Drivers Asha Silva, Noah Cosby and Steve Crompton have competed in the season this year.

Paul Fullick and Tyrone Mathurin stepped up a level to drive the team’s BMW M240i in the Britcar Trophy, securing podium finishes in two rounds.

Chris Overend and James Whitley had their first season in the British Endurance Championship, driving the McLaren 570S GT4. Funding Paul Fullick challenges for them both meant a short season with high hopes to get back on and Tyrone Mathurin the grid soon.

GT4 drivers Aaron Morgan and Bobby Trundley started the season in the British GT Championship before moving over to the inaugural McLaren Trophy Series Europe. The McLaren series saw the pair competing in a single make class for the 570S, rather than competing against the newer and far more competitive McLaren Arturas in the British BT Championship.

In a historic milestone moment for the team, Aaron Aaron Morgan and Bobby Trundley Morgan took part in the Goodwood Festival of Speed, competing in the Hillclimb in the event’s 70th anniversary.

The team had its McLaren on display throughout the 4 day event, meeting thousands of motorsports fans and sharing news of its history, achievements and future plans for disability racing.

There’s just one race left for the team in the British Endurance Championship at Donington on the 15th October. Aaron Morgan will team up with guest driver Takuma Aoki, a former superbike champion from Japan who was paralysed in a racing accident, and drivers Paul Fullick and James Whitley will pair up for the first time. Both pairs will be driving in McLarens.

More information at www.teambrit.co.uk

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Dame Christine Lenehan calls on SEND sector to keep pushing for disabled children to be a priority

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ver 200 invited guests from across the children’s sector gathered in Westminster on Monday 25 September to hear Dame Christine Lenehan give a stirring valedictory address to mark her retirement after nearly 40 years of tireless work to creative an inclusive society for all children and young people.

Dame Christine, who formally stepped down from her roles as Director of the Council of Disabled Children (CDC) and Strategic Director of Practice and Programmes at the National Children’s Bureau (NCB) on 29 September, reflected on a career that has had a profound and lasting impact on the lives of many children and young people and the systems that support and surround them.

A hugely influential champion of the rights and needs of children and young people, particularly those with special educational needs and disabilities, Dame Christine has been a key figure in the development and impact of CDC and NCB. She became Director of CDC in 2003, having joined NCB in 2000 and was awarded an OBE in 2009 and a Damehood in 2016 in recognition of her outstanding work.

The concluding words of her speech were greeted with a rousing standing ovation from the audience that included civil servants, parliamentarians, funders, supporters, colleagues past and present and friends and family and she was given a second, possibly even longer and louder, ovation at the very end of the evening.

But the night belonged to Dame Christine Lenehan, who shared her wisdom and insights from a remarkable career with her assembled guests, reflecting on her journey and looking ahead to the future.

She began by talking about her own humble beginnings, growing up “determined and strong in an environment that didn’t reward poor children… and with a sense of injustice and anger”. Her first opportunity to channel this anger and passion, she said, came as a teenage volunteer in a long-stay mental illness hospital, where she listened with horror to the stories of injustice and lack of understanding endured by patients and their families.

Having begun her career as a residential social worker, because she “wanted to understand how lives 48

Image credit: National Children's Bureau/Anton Denny-Browne

were lived”, Dame Christine had her first experience of working in multi-agency teams that brought together social workers with health professionals and others to share accountability and responsibility.

“I started to understand that there had to be a better way of doing things,” she told the audience. “We were trying to fix bits of people's lives, but we weren't changing them properly… I realised that systems are not built on middle-class white families you had to build them for families of all cultures and all backgrounds.”

She then worked for Barnardo’s in Tower Hamlets for 15 years looking at how you set services up from scratch, based on an understanding of the communities that needed those services.

“I worked with poverty, politics and race,” she explained, “taking the lessons from the outside about how you can build services that matter to communities, how you build services that deliver what people actually want… I got interested in where you have to be in a system to make the most difference.”

She lobbied for the 1989 Children Act – “a fundamental piece of law that brought disabled children for the first time into mainstream children’s legislation” – and continued to work with the civil service and others across the sector, becoming a member of the Council for Disabled Children, which its then director Dame Philippa Russell (herself in the audience) asked Dame Christine to come and work for in 2000.

“I realised this was the part of the system where I could make the greatest change happen,” she said. “I moved away from practice towards policy, but never lost Ability Needs Magazine

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touch with the lives of families.”

Dame Christine then shared her learnings from her time with CDC and NCB. “I’ve learned that wherever you are in the system, the starting points are always different…. you have to be good at shuttle diplomacy…

I’ve also learned that cultural change takes a very long time.”

She explained how her team built in a section of the Children and Families Act 2014 on cultural change, which she said is “tough and hard, but worth the effort… at the heart of all we do, we work with people and we work on building trust between one and another.”

“We don’t always agree with each other, but we have to understand how to respect and how to work with difference and we have to hold our own.”

She said she had asked herself the question: “How can I as a non-disabled person stand up, represent and advocate for the needs of disabled people? The people that told me to do that were disabled people themselves. They taught me how to be an ally, how to listen and to hear… we have to understand that each story is different and that it’s not a single voice, it’s a narrative that we have to work with.”

She talked about the struggles that families have with the system that should be designed to support them, but can be often be difficult to access or understand for those that need it most. And she paid tribute to those working across the sector to create better lives and better childhoods.

“You have to work out how to stop people getting overwhelmed, break things into bite-sized pieces and take people on a journey that they know is worth taking…. and I’ve been really impressed with the resilience of the professionals I’ve worked with at all levels of the system…. This is a system built on emotion and passion and every day people tell us their stories.

Stories that are really, really important. And if you can't connect on a human level, you can't do this. You have to be listening, you to have to relate, you have to understand… I want to work with humanity and humility.

My success is built on the networks I make and the people I work with and the people that I listen to.”

Dame Christine also talked about her work in safeguarding, where her influence and impact has been significant. “I’ve had to work with tragedy and abuse,” she said, recalling her early work in a mental illness hospital where people were “locked away from society and treated with little humanity and dignity”, an experience that she said was important in light of her work leading a review of the care of disabled children and young people with challenging behaviour and complex mental health needs commissioned by the Department of Health in 2017 and then being part of the Child Safeguarding Review Panel this year which looked into the appalling failings of three Doncaster residential homes.

“It was really hard 40 years later, to watch that happen again. Children a long way from home, children whose communication skills were not recognised, children who had stopped being seen as human beings.

When that happens, we fail. We fail when we forget that Ability Needs Magazine

people have a right to be safe, secure and loved.”

But for all the failures we’ve endured as a society and the challenges we continue to face, Dame Christine still believes in the power of positive thinking.

“It’s not helpful just to think that the world is going to hell in a handcart because children and families continue to live their lives. We have to believe in positive change and we have to celebrate success,” she said, highlighting the importance of the CYP Now and nasen sector awards. “Success is what keeps us going… if we do not believe positive change is possible, then it won’t happen and our children and families deserve more than that.”

As examples of positive change, she spoke about how much better we are at hearing children’s voices and understanding their right to citizenship and how this was now at the heart of the system. She said there is now a strong vision about what we need to achieve and with the SEND and AP Improvement Plan there is a vehicle to make this happen.

She ended her speech with four wishes:

1. To be serious about change; 2. To keep pushing for children to be a priority in our health services, amid increasing complexity in the health needs of disabled children; 3. For the SEND change programme to recognise children with social, emotional and mental health needs; and 4. To celebrate success across the sector and to share how working together will result in the change that we all want to see.

In the new year, Dame Christine will return to act as a strategic advisor to NCB, which will include being the independent chair of SEND Improvement Boards in local areas.

This year is the 60th anniversary of NCB. To mark this milestone, we have created an interactive online journey through more than six decades of our work and the changing political, social and legislative landscape.

60 years old. Forever Young.

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Five top tips for protecting your hearing at live music events

HE live music season has been in full swing, but thousands of music lovers are flocking to venues all around the UK without realising the impact that this could be having on their hearing.

A 2022 BMJ study found that around the world, one billion people aged 12-34 are at risk of noiseinduced hearing loss (NIHR) due to attending loud music events without adequate hearing protection.

Recent NHS data also showed that over a third of patients – over 50,000 people - are under 50. A decade ago, this age group represented a quarter of hearing-related hospital admissions.

Noise-induced hearing loss (NIHL) is a form of sensorineural hearing loss that occurs because of overexposure to loud volumes, or a one-time traumatic event, such as an explosion. Prolonged exposure to sounds over 85 dB can cause permanent damage to the delicate structures in our inner ear, impacting the neural pathways that carry signals to our brain which are then registered as sound. The louder the sound, the less time exposure it takes to cause harm to our hearing; a sound at 115 dB such as a jet engine or a loud music concert has the potential to significantly harm hearing in less than 30 seconds.

After age-related factors, exposure to loud noises is the second biggest cause of hearing loss. It can also go hand in hand with tinnitus, with overexposure to loud volumes triggering this debilitating condition. A recent survey of 2,000 UK based adults commissioned by Specsavers found that 81% of festival goers admitting that they often leave events with their ears ringing, so it’s no surprise that so many attendees are leaving festivals with more than they bargained for.

One of the best things that you can do in your pre-concert preparation is ensure that your hearing is

going to be protected throughout the event. Almost half of those surveyed in the Specsavers research (46%) were convinced that their hearing has been damaged because of the loud noise. Yet, a recent poll carried out by EDM.com also found that 49% of music festival attendees do not wear ear protection.

While the damage may not be immediately noticeable, numerous exposures to high levels of noise over a lifetime can land you with irreversible hearing damage that could have been prevented.

Some of the ways that you can intentionally prevent that damage are: 1. Wear ear plugs – the best protection comes from custom made ear plugs which will filter sound without reducing sound quality and still provide protection.

2. Choose where you want to stand – the closer you are to the speakers, the worse the risk to your hearing.

3. Take regular breaks – as little as 10 to 15 minutes can help hearing loss prevention.

4. Keep track of how loud it really is – there are smartphone apps that will check Db levels for you wherever you are.

5. Get your hearing checked regularly.

Paul Surridge, Chairman of the British and Irish Hearing Instrument Manufacturers Association (BIHIMA), said: “Early intervention for hearing loss allows your auditory pathway and your brain to remain active – this can, in turn, delay deterioration.

With the enormous body of evidence showing the links between untreated hearing loss and conditions such as dementia or poor mental health, the sooner you can get the appropriate support for your hearing, the better.”

BIHIMA represents the hearing instrument manufacturers of Britain and Ireland, working in partnership with other professional, trade, regulatory and consumer organisations within the health care and charitable sectors. We raise consumer awareness about the latest hearing technology and aim to influence government and policy makers to improve the lives of people with hearing difficulties.

For more information visit www.bihima.com

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Be free.

ShopMobility UK co-ordinates a network of local ShopMobility centres which hire mobility scooters, powerchairs and wheelchairs for everyone, of all ages, to enjoy independence.

Find your nearest centre at:

www.shopmobilityuk.org Proud to be part of:

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Supported by:

09/12/2021 12:18

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Research into our genes is bringing us closer to hearing loss treatments Hearing loss affects 1 in 5 UK adults, and yet there are currently no treatments that can restore hearing or prevent it from getting worse.

One person who is seeking to change this is Professor Karen Steel, who discussed the biological causes of hearing loss at the 2023 Hearing Therapeutics Summit.

Karen’s work into the genetics of deafness Throughout her research career, Professor Karen Steel and her team have identified dozens of genes that are involved in hearing loss, which has helped increase our understanding of the role of those genes in hearing.

How RNID has worked with Karen We’ve funded research projects in Karen’s lab since 2004, as well as supporting early-career researchers in her lab through PhD studentships and fellowships. This includes research that linked a new type of gene, called a microRNA, to hearing loss – and to an inherited condition – for the first time. This work has gone on to open up a whole new field of research into hearing loss.

Unlike other genes, microRNAs do not produce proteins, but rather control large networks of other genes – and targeting these networks could be an effective way of preventing and treating hearing loss.

As well as this, we’ve funded Karen to understand how several other genes, linked to hearing loss in people, are involved in hearing.

We hope that this research will ultimately lead to the development of treatments that can target these genes in the ear or brain and protect or restore hearing.

Recent research developments Karen’s team have recently celebrated a huge

milestone, after successfully reversing hearing loss in young mice. The researchers say this study suggests that hearing loss in humans resulting from reduced gene activity may be reversible. Karen said: “We are building a solid grounding of understanding of the molecular and pathological basis of progressive hearing loss. In one type of pathology in a hearingimpaired mouse, we have provided evidence that hearing loss can even be reversed if treated early enough. We hope that this will be the tipping point that persuades industry to invest in developing new drug-based treatments.

“I also hope that the next steps of our research will lead to diagnostics and treatments becoming available for people with progressive hearing loss, and that hearing loss will no longer be regarded as an inevitable part of growing older.”

We’re currently funding Karen to investigate if it is possible to reverse hearing loss in adult mice with progressive hearing loss that is similar to age-related hearing loss in people. If successful, this will increase confidence that we will be able to find treatments that can reverse the hearing loss that happens with age.

We are incredibly grateful to our friends at the Exilarch’s Foundation, who have kindly agreed to fund this incredible research in its entirety.

Dr Ralph Holme, Director of Research and Insight at RNID, said: “Professor Karen Steel’s work, which RNID have funded for almost twenty years, has made a huge contribution to hearing research; shaping and increasing our understanding of the role of genes in hearing and opening up a whole new field of study.

“We’re incredibly excited about Karen’s current research, which could have big

For more information visit www.rnid.org.uk 52

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Mencap urges more employers to recruit people with a learning disability

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S UK businesses see high levels of vacancies across key sectors of the economy, a new research report from learning disability charity Mencap reveals the struggles faced by a large section of society who want to work - people with a learning disability.

A staggering 86% of survey respondents with a learning disability who did not have a paid job said that that they would like one.

There are around 800,000 working-age adults with a learning disability in the UK1, but less than a third of them (26.7%) are in paid work2.This is the lowest employment rate of any health condition or disability3, but many people with a learning disability want to work.

Mencap wants companies to recognise the abilities of people with a learning disability, appreciate the value they bring to a business, and help make the workplace accessible.

Zeeshan Sharif, an employment case worker for Mencap who supports people with a learning disability to find a job, has witnessed first-hand the barriers and challenges that exist. “We have people with a learning disability applying for hundreds of jobs a week and not getting any feedback. There's a huge range of candidates who just want an opportunity to work.

“One of the people I support got a haircut and bought a suit to make a Robert, 64, from Bristol great impression for an interview. When we arrived, the interviewer took one look at us and said ‘I’m sorry, he won’t be suitable for the role.’ without even taking the candidate through any of the questions he’d prepared. I've noticed people who don’t disclose their learning disability on applications tend to get more opportunities.”

The Work and Learning Disability Research Report by the National Development Team for Inclusion (NDTi), reveals that when it comes to gaining and retaining jobs, the barriers and problems faced by people with a learning disability are so prevalent that many find it impossible to get work and others leave because of poor experiences.

The report findings also highlight how an over-complex benefits system is a significant obstacle for many people surveyed, respondents identified numerous other barriers to work.

For many, the application process itself is a problem, with 23% of the people without a job who would like a paid job identifying inaccessible application forms as one of the things preventing them getting work.

Of those who had found work, a number had left because of their experiences of the workplace. A lack of understanding and support from management and colleagues, inaccessible buildings and IT systems, and workplace prejudice were all cited as reasons why participants had left jobs.

Robert, 64, from Bristol, has spent years facing challenges at work. “When I worked for one of the big supermarkets, I don’t feel they made reasonable adjustments for me and I felt like I was being rushed to do things, which made me anxious. I liked the job but I needed longer to complete tasks.” Robert also has experience of working in a busy kitchen. “I was struggling to do the job and one day I said to the staff it was ‘because I had a learning disability’, and their reaction was ‘that’s the most ridiculous thing I have ever heard’.”

Having a job is not just a source of income and independence; for many it also brings opportunities to make friends, develop new skills and can improve self-confidence. The survey asked people in paid work to identify the best thing about their job, the top reasons included helping other people (38%), learning new skills (36%) and nearly a third (29%) of people said work made them feel better about themselves.

People with a learning disability have the right to work. They also have the right to equal pay, to opportunities for career progression and to the provision of support-needs at work.

Mencap has a wealth of information to help support businesses and provide information on the benefits of employing people with a learning disability, as well how to make recruitment processes and business practices more accessible.

For more information visit www.mencap.org.uk

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Ability Needs Magazine

Tea Break Quick Crossword Quiz Tea Break QuickSaid Crossword Who That? Thought of the Day Wordplay Knowledge boosting...Trivia! Tea Break Quick Crossword Quiz Who Said That?

Thought of the Day Wordplay Remember When . . .

Quiz Knowledge boosting...Trivia! Tea Break Quick Crossword Quiz Thought for the day Who Said That?

Thought of the “ ” Day Wo Wordplay: rdplay Knowledge boosting...Trivia!

Am I? TeaWhoBreak Quick Crossword Quiz Who Said That? Thought of the Day Wordplay Knowledge AN_p55_TeaBrk_48_AN406_KidzSouth 28/09/2023 09:48 Page 1

CROSSWORD CLUES

ACROSS 1. On the house (6) 4. Eat quickly and greedily (informal) (5) 7. Little child (6) 8. Professional life history (6) 9. Small eel (4) 10. Type of digital memory storage (4-4) 12. Just deserts (11) 17. Intensify (8) 19. Trouble (informal) (2-2) 20. Expat (6) 21. Bird house (6) 22. Shorthand typist (abbr) (5) 23. One who eats no meat or fish (abbr) (6)

All these events occurred in the same year but in which year was it?

• Actor Peter Cushing died • Wet Wet Wet were at No.1 for 15 weeks with “Love Is All Around” • John Travolta and Uma Thurman starred in Pulp Fiction • The UK lottery began

…A generous heart, kind speech, and a life of service and compassion are the things which renew humanity…

Buddha

GENETHLIOAC

The word may seem familiar but do you know what it means?

A – Bringing into life B – Relating to a birthday C – Pertaining to origin

1. Fango is the Italian word for what?

2. What is the title of a song from a popular musical and a national symbol which translated means "noble white".

3. Which famous three word cartoon phrase is inscribed on Mel Blanc's gravestone?

4. The name of which part of Manhattan was a metonym for the American music industry in the late 19th and early 20th century?

5. In the 1965 war film The Heroes of Telemark, a Norwegian commando sinks a ferry loaded with deuterium oxide destined for Nazi Germany.

Deuterium oxide is better known as what?

6. With which US city does one associate the slogan "What Happens Here, Stays Here"?

7. In which Dashiell Hammett novel are the detective couple Nick and Nora Charles the central characters?

8. Pluto's largest moon is named after which underworld figure?

9. Which British controlled territory in the Indian Ocean, leased to the US military, is a so called "unsinkable aircraft carrier"?

10. American singer songwriter Richie Haven's ashes were scattered on a field near which famous town in New York State?

• A politician, I was born in South Dakota in 1922.

• I won a seat in the House of Representatives in 1956, and ran for Senate in 1960.

• I was vocal in my opposition to the Vietnam War. I lost the 1972 US presidential election to Richard Who am I? Nixon.

Ability Needs Magazine

DOWN 1. Non-specific (7) 2. Mixed result? (7) 3. Break into (9) 4. Be upright on one’s two feet (5) 5. Of the seven seas (7) 6. Ventures (6) 11. Addition to - PPE agenda (anag) (9) 13. An open space? (7) 14. A trifle (7) 15. Back (7) 16. 1982-93 Boston-based TV sitcom (6) 18. Arthur Marx, d. 1964 (5)

ABILITY NEEDS

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Answers can be found on page 56

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AN_p56_Subs_p51-52_AN306_GoodService.qxd 28/09/2023 09:49 Page 1

TEA BREAK ANSWERS Quick Crossword ACROSS 1. Gratis; 4. Scoff; 7. Infant; 8. Career; 9. Grig; 10. Read-only; 12. Comeuppance; 17. Heighten; 19. To-do; 20. Emigre; 21. Aviary; 22. Steno; 23. Veggie DOWN 1. Generic; 2. Amalgam; 3. Interrupt; 4. Stand; 5. Oceanic; 6. Forays; 11. Appendage; 13. Orifice; 14. Nothing; 15. Endorse; 16. Cheers; 18. Harpo

Quiz 1. Mud; 2. Edelweiss; 3. That's All Folks; 4. Tin Pan Alley; 5. Heavy water; 6. Las Vegas; 7. The Thin Man; 8. Charon; 9. Diego Garcia; 10. Woodstock

Remember When . . .

Word play

1994

B – Relating to a birthday

Who Am I?

George McGovern

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