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WomenHeart:

The National Coalition for Women with Heart Disease

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2014 Annual Report

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WomenHeart: The National Coalition for Women with Heart Disease Mission Statement

To improve the health and quality of life of women living with or at risk of heart disease, and to advocate for their benefit. 002_WASH1115_lr 2

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Letter From the CEO and Board Chair women’s heart health. The following pages showcase the years of progress and achievement by WomenHeart since its inception in 1999, putting women’s heart health on the national radar and laying the foundation for the eradication of heart disease as the leading cause of death in women. 2014 was a groundbreaking year for WomenHeart on many fronts. We continued our leadership in providing free patient support services for women living with heart disease—the foundation of our organization—by partnering with progressive hospitals throughout the country through the National Hospital Alliance. We also launched ten national public health education campaigns on various topics in women and cardiovascular health. Through these multi-faceted, multi-year programs, we brought timely and vital information and resources to women and the public about topics ranging from heart failure to atrial fibrillation and stroke risk —for the first time. We also continued the expansion of our national Latina heart health program through another incredibly successful partnership with Burlington Stores. We increased our outreach to the medical professional community and the engagement and impact of our more than 700 volunteer WomenHeart Champions. And 2014 was just the most recent year of inspiration and accomplishment to cap off an amazing first 15!

Greetings to our WomenHeart community, WomenHeart: The National Coalition for Women with Heart Disease is pleased to present our 2014 Annual Report—and what a dynamic year it was! When we think of women’s heart health, we instinctively think of the 42 million women living with or at risk for heart disease, and how WomenHeart is involved every day—at the national, regional and local levels throughout the country— to ease their burden and improve their quality of life. And we think about all the ways that we, with the support of so many volunteers, partners, friends and supporters, not only make this possible, but how we can do even more, together. 2014 marked a special year for WomenHeart as we celebrated our 15 year anniversary. And while this publication reports on this special year, we also took this opportunity to share our journey of firsts and the role our organization has played in advancing

From our founders in 1999 to current day staff, Board, Scientific Advisory Council, WomenHeart Champion patient volunteers, and partners from many sectors of business, advocacy and health, our passion hasn’t wavered and our dedication has grown. Our efforts are stronger than ever before to eliminate disparities in care, and to improve prevention, early diagnosis, proper treatment, and awareness of heart disease in women. As we look to the future, we thank all of you, our volunteers and partners, for helping us make this progress possible. Your commitment to our partnership helps us lead the national efforts to advance women’s heart health through creative solutions, exciting opportunities, and sound programs and policies that will save the lives of women for many years to come.

Mary E. McGowan

Kathy Webster

Chief Executive Officer

Chair, Board of Directors

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WomenHeart A Story of Firsts WomenHeart: The National Coalition for Women with Heart Disease is a story of firsts—firsts that have been inspired by brave women, dedicated scientists, passionate volunteers, innovative leaders, and committed partners. These people contributed to the extraordinary efforts that have provided WomenHeart opportunities to establish the trajectory of women’s heart health during the past 15 years. WomenHeart was founded on the heels of the 1986 National Heart, Lung and Blood Institute (NHLBI) workshop on heart disease in women; the 1990 establishment of the Office of Research in Women at the National Institutes of Health (NIH); and the 1992 NHLBI conference on women’s cardiovascular health. It would forever change the landscape of eradicating heart disease as the leading cause of death in women and supporting women living with this life-threatening disease. Its launch created the first and still only national patient-centered organization solely devoted to supporting women living with heart disease. WomenHeart would serve as founding partner of the first national education and awareness campaign about women and heart disease; expose the public for the first time to the physical and emotional scars left from heart disease; launch the first national network of patient support programs for women living with heart disease; and create the first national event to formally recognize individuals and organizations who have accelerated the advancement of women’s heart health. There are many more proud firsts and will continue to be. In the following pages you will re-live this inspiring history—a history of firsts by an organization that was first in class to change and save the lives of women.

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1998

WomenHeart’s original logo

WomenHeart’s current logo

1999

In September, MORE magazine interviews heart disease survivors Nancy Loving, Jackie Markham, and Judy Mingram for an article entitled “Women & Heart Attacks” by Kathleen McAuliffe. It would be the first time the three women connected. They would then go on to create WomenHeart the next year.

1999

— WomenHeart: The National Coalition for Women with Heart Disease is founded as a 501c(3) organization. It is the first national organization serving the 42 million women living with or at risk for heart disease, the leading cause of death in women.

— Nancy Loving is named CEO.

1999

— WomenHeart Scientific Advisory Council established with the nation’s top medical experts in women’s heart health.

1999

1998

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2000 Sharonne N. Hayes, MD (third from left) with WomenHeart Champions Elise Poole, Marty Cherol-Metcalfe, and Margaret Patteson.

2000 —

First Wenger Awards. The Awards formally recognize individuals and organizations that make extraordinary contributions to women’s heart health.

2002

— Inaugural WomenHeart Science & Leadership Symposium at Mayo Clinic launches under the direction of Sharonne N. Hayes, MD. Dr. Hayes is founder of the Women’s Heart Clinic at Mayo Clinic. The Symposium is the only national volunteer training program for women with heart disease that prepares them to be community educators, advocates, spokespersons, and Support Network Coordinators.

2002

— WomenHeart is a Founding Partner of the National Heart, Lung and Blood Institute’s The Heart Truth®/Red Dress national public health awareness campaign. The campaign—the first of its kind—educates women about their heart disease risk factors and motivates them to take action to prevent the disease.

2001

— WomenHeart is the impetus behind the National Heart, Lung and Blood Institute’s strategy development workshop, “Women’s Heart Health: Developing a National Health Education Action Plan.”

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2003 —

First national survey of attitudes and experiences of women with heart disease released in the journal Women’s Health Issues. 2003

— TIME magazine publishes an article about heart disease in women featuring WomenHeart Champion and Board Chair Kathy Kastan.

2003

— First edition of Stories from the Heart, a collection of personal essays by women with heart disease and their family members, is published.

2003

— Support Network program formally launches.

WomenHeart Champion and former Board Chair Kathy Kastan and First Lady Laura Bush at the National Wear Red Day ceremony.

WomenHeart representatives attend the inaugural National Wear Red Day ceremony at the White House, hosted by First Lady Laura Bush. 2004

— WomenHeart co-founders Loving, Markham, and Mingram are honored by Woman’s Day magazine with the first Woman’s Day Red Dress Award for their dedication to women’s heart health.

2004

— First WomenHeart National Advocacy Institute in Washington, DC.

2004

— First national conference for women heart patients and their families held at the University of California-Los Angeles in July.

2004

2004

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2005 Ladies in Needle Crafting knit 200 HeartScarves for WomenHeart.

2005

— WomenHeart Champions develop HeartScarves, a program where hand-made red scarves are given to women recovering from a heart procedure. The scarves offer comfort, support and encouragement, and are distributed in hospitals and at Support Network meetings. The program is developed by WomenHeart Champions Marilyn Deak, Suzie Arnegger, Betsy Doherty, and Tina Bradford.

2005

— Red Bag of Courage® program launches to provide women with accurate information and resources about heart disease, so that they can make heart healthy decisions about diet, exercise, medical treatment and mental health. The Red Bag of Courage® is distributed through WomenHeart Champions, Support Networks, women’s heart programs, physician offices and partner organizations.

2005 —

Number of WomenHeart Champions reaches 200.

Red Bag of Courage®.

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2005

— NATIONAL ‘WHITE BLOUSE’ PUBLIC SERVICE ANNOUNCEMENT CAMPAIGN

The four PSAs ran in The New Yorker magazine and The Wall Street Journal in 2005 with much critical acclaim. They drew attention to the fact that heart disease is, in fact, a woman’s disease. They provided four diverse profiles of women that other women could relate to—and question whether they, too, had unexplained symptoms that might be related to heart disease. The campaign continues today through distribution of small, poster-sized reprints that are displayed in hospital and patient waiting rooms throughout the country. This timeless campaign reminds us all that “If heart disease is a man’s disease, then why do more women die from it?”

2005

The posters were stark, black-andwhite images of four women wearing white blouses, unbuttoned to reveal the scar left from heart surgery. One held her young daughter, also with a scar. Each poster tells that woman’s harrowing story of her experience with heart disease: she was too young; she was misdiagnosed; she was a woman.

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2006 WomenHeart Champions from Florida on Capitol Hill meeting with their elected officials as part of the WomenHeart Advocacy Institute.

2006 —

Inaugural 10Q Report: Advancing Women’s Heart Health Through Improved Research, Diagnosis and Treatment published in collaboration with the Society for Women’s Health Research. Leading experts reach consensus on the top 10 questions in women’s cardiovascular medicine and provide a roadmap for future research concerning women’s cardiovascular health.

2006

— National conference for women heart patients and their families held in Chicago in July

2007

— First survey of WomenHeart Champions.

2007

— Lisa M. Tate becomes CEO of WomenHeart.

2007

— ALL HEART Family Cookbook published.

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2008

— SisterMatch launches, connecting women with heart disease one-on-one with a WomenHeart Champion heart sister volunteer who can provide needed support over the phone, in person, or via email. Thousands of women have now been helped through this lifesaving outreach.

2008 —

Number of WomenHeart Champions reaches 400.

2008

— Major federal advocacy initiative debuts to support programs that enable women to practice prevention and ensure timely detection, accurate diagnosis, and proper treatment of heart disease in women.

WomenHeart Champion Evan McCabe presents the 2008 Wenger award to SAC member C. Noel Bairey Merz, MD.

2008

WomenHeart Champions visit their local representatives on Capitol Hill to advocate for women’s heart health.

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2009 2009

— WomenHeart patient support services and patient education programs are featured on ABC World News Tonight with Charlie Gibson.

2009

— Circle of Helping Hearts Tour with Cheerios™ provides cholesterol screenings at several locations throughout the Southwest and in California. The program brings much-needed heart health education and screenings to underserved and high risk women.

2010

— WOMENHEART PROVIDES OPPORTUNITY FOR SCAD STUDY AT MAYO CLINIC Spontaneous Coronary Artery Dissection, or SCAD, is a type of heart attack caused by the spontaneous tearing of the coronary artery wall. SCAD typically occurs in otherwise healthy, young women with no risk factors for coronary heart disease. SCAD is poorly understood and research-based evidence for proper diagnosis and treatment is lacking. SCAD is challenging to diagnose because health care providers often do not consider the possibility of heart disease in these young women and the angiogram can be hard to interpret. In 2010, the largest study of SCAD patients was initiated through WomenHeart’s relationship with Mayo Clinic. The study is being led by Sharonne Hayes, MD, FACC, Founder of the Women’s Heart Clinic at Mayo Clinic and WomenHeart Scientific Advisory Council member, and was inspired by two WomenHeart Champions, Katherine Leon and Laura Haywood-Cory, who participated in the 2009 WomenHeart Science & Leadership Symposium. Leon and Haywood-Cory are both SCAD patients who met through the WomenHeart online patient community and advocated for more research on the condition. SCAD patients are referred to the study through WomenHeart’s online patient support community. This progressive approach to patient-driven research has captured the attention of SCAD patients world-wide who have enrolled in the study. The SCAD study was featured in The Wall Street Journal and many other news outlets. In 2012, Leon and Haywood-Cory were honored with a Woman’s Day Red Dress Award from Woman’s Day magazine for their groundbreaking approach to initiating this important research.

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Senator Lisa Murkowski, 2009 Wenger Award winner, talks with Dr. Wenger (left) and Carol Allred.

2010

— First Spanish-language Support Network launches in Miami.

2010

— First regional symposium for women heart patients in Chicago attended by 100 women.

TIME magazine publishes an article about WomenHeart Champions and their role as community educators and advocates.

2010

WomenHeart-CheeriosTM Circle of Helping Hearts Tour.

2010

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2011

Jacob Gayle of Medtronic presents 2012 Wenger Award to US Surgeon General Regina Benjamin.

2011

— Secures first $1 million partner: national off-price retailer Burlington.

2011

— The Wall Street Journal highlights WomenHeart’s online support community and WomenHeart’s leading role in SCAD research at Mayo Clinic.

2011

— Updated the 10Q Report: Advancing Women’s Heart Health Through Improved Research, Diagnosis and Treatment with the Society for Women’s Health Research. Highlights were published in the Journal of the American College of Cardiology.

2011

— Make the Call. Don’t Miss a Beat is the first national public health education campaign to teach women the signs of a heart attack and urge them to call 911. WomenHeart serves as the lead patient partner organization for this Department of Health and Human Services groundbreaking campaign.

2012

2012

2012

2012

— USA Today publishes a Special Edition on women’s heart health in February for American Heart Month. The article focuses on WomenHeart and profiles several WomenHeart Champions.

— WomenHeart Champions attend the White House Community Leaders Briefing on heart health in February.

— Launches National Hospital Alliance, a unique partnership between WomenHeart and progressive hospitals nationwide dedicated to advancing women’s heart health in their community.

— The Wall Street Journal publishes story about WomenHeart Support Networks.

2012 —

Number of WomenHeart Champions reaches 600.

THIS IS WHAT A HEART ATTACK FEELS LIKE TO A WOMAN.

THIS IS WHAT A HEART ATTACK FEELS LIKE TO A WOMAN.

THIS IS WHAT A HEART ATTACK FEELS LIKE TO A WOMAN.

THIS IS WHAT A HEART ATTACK FEELS LIKE TO A WOMAN.

(BREAKING OUT IN A COLD SWEAT)

(UPPER BODY PAIN, OR DISCOMFORT IN ONE OR BOTH ARMS, BACK, SHOULDER, NECK, JAW OR UPPER PART OF THE STOMACH)

(SHORTNESS OF BREATH)

(LIGHT-HEADEDNESS OR SUDDEN DIZZINESS)

Other Heart Attack Symptoms to Watch Out For:

Other Heart Attack Symptoms to Watch Out For:

Other Heart Attack Symptoms to Watch Out For:

Other Heart Attack Symptoms to Watch Out For:

Chest pain, discomfort, pressure or squeezing, like there’s a ton of weight on you • Shortness of breath • Nausea * Light-headedness or sudden dizziness • Upper body pain, or discomfort in one or both arms, back, shoulder, neck, jaw or upper part of the stomach • Unusual fatigue

Chest pain, discomfort, pressure or squeezing, like there’s a ton of weight on you • Shortness of breath • Nausea • Light-headedness or sudden dizziness • Unusual fatigue • Breaking out in a cold sweat

Chest pain, discomfort, pressure or squeezing, like there’s a ton of weight on you • Nausea • Light-headedness or sudden dizziness • Upper body pain, or discomfort in one or both arms, back, shoulder, neck, jaw or upper part of the stomach • Unusual fatigue • Breaking out in a cold sweat

Chest pain, discomfort, pressure or squeezing, like there’s a ton of weight on you • Shortness of breath • Nausea • Upper body pain, or discomfort in one or both arms, back, shoulder, neck, jaw or upper part of the stomach • Unusual fatigue • Breaking out in a cold sweat

If you experience any one of these symptoms, don’t make excuses for them. Make the call to 9-1-1. Don’t miss a beat.

If you experience any one of these symptoms, don’t make excuses for them. Make the call to 9-1-1. Don’t miss a beat.

To learn more, visit WomensHealth.gov/HeartAttack

To learn more, visit WomensHealth.gov/HeartAttack

If you experience any one of these symptoms, don’t make excuses for them. Make the call to 9-1-1. Don’t miss a beat. To learn more, visit WomensHealth.gov/HeartAttack

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If you experience any one of these symptoms, don’t make excuses for them. Make the call to 9-1-1. Don’t miss a beat. To learn more, visit WomensHealth.gov/HeartAttack

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2012

— A KEY PROVISION OF THE HEART FOR WOMEN ACT Over the past few decades, researchers have learned that sex and gender differences play an important role in the prevention, diagnosis, and treatment of cardiovascular disease. Heart attack symptoms may manifest themselves differently in women than in men, and women may respond differently to cardiac medications, devices, and procedures. The extent of these differences has not been sufficiently studied. A 2011 study by Rita Redberg, MD, WomenHeart Scientific Advisory Council Member, showed that among studies of high risk devices approved by the FDA, fully 28 percent did not even report the sex of the research subjects and only 41 percent of studies provided sex-specific results or acknowledged gender issues. Of those that did report results in women, one-quarter found differences in safety or effectiveness, confirming the importance of full inclusion of women in cardiovascular research.

In August 2014, a year after publication of the 2013 report, the Department of Health and Human Services Secretary published an action plan. It included recommendations to improve the completeness and quality of analyses of product safety and effectiveness by demographic subgroups, as well as recommendations to improve the public availability of such data to patients, health care providers, and researchers. WomenHeart continues to work with the FDA to ensure that these recommendations are put in place.

— Minority representation and high-risk state participation significantly increases at the Science & Leadership Symposium at Mayo Clinic.

2012

— WomenHeart@Work program launches to promote heart health in the workplace.

2012

— Strengthening the Heart of Georgia, a regional Science & Leadership Symposium held in Atlanta, trains 30 Georgia women with heart disease to be WomenHeart Champions and Support Network Coordinators.

2012

With the help of WomenHeart’s advocacy, on July 9, 2012, a key provision of the HEART for Women Act was signed into law. Sponsored by Senator Debbie Stabenow (Michigan), the bill required the FDA to publish a report within one year of enactment addressing the extent to which new drug and device applications submitted for FDA approval include clinical trial participation and safety and effectiveness data by demographic subgroups.

2012

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2013 WomenHeart Champion Mildred Rodriguez at the Woman’s Day Red Dress Awards.

2013 —

Para la Mujer Hispana is the nation’s first comprehensive public health education campaign about heart health for Latinas. Created through the Burlington Stores partnership, the program includes the Para La Mujer Hispana Red Bag of Courage®.

2013

— Woman’s Day magazine publishes “The Road to Heart Health” article, recognizing the creation of WomenHeart in 1999 as one of the main milestones on the road to heart health.

WomenHeart reaches the women Latina audience through Heart of Style tour

2013

— WomenHeart starts providing free patient support in 12 more states.

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2014

— Nation’s first series of topicspecific national public health education campaigns on women’s heart health debuts from WomenHeart.

2014

— Heart of Style Tour with Burlington launches, providing heart health screenings and heart health information in English and Spanish to thousands of women nationwide.

2014

— WomenHeart Board identifies National Hospital Alliance as top priority.

2014

— WomenHeart celebrates 15th Anniversary at the 2014 Wenger Awards.

2014

— WomenHeart Champion Mildred Rodriguez is honored with a Red Dress Award from Woman’s Day magazine for launching the first Spanish WomenHeart Support Network in 2010 in Miami.

2014 —

Number of WomenHeart Champions reaches 700. US Representative Rosa DeLauro (Connecticut) at the WomenHeart 15-year anniversary Wenger Awards.

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2015 Heart health screening during the Heart of Fitness Tour in Miami .

2015

2015

Heart of Fitness Tour launches in collaboration with Burlington Stores.

— National Hospital Alliance capacity-building program launches to provide grants to hospitals serving high percentages of underserved women to support their Alliance membership.

2015

— First Annual Meeting of the National Hospital Alliance.

2015

— Mary E. McGowan is named CEO of WomenHeart.

2015

— First Policy & Science Summit on women’s heart health is hosted by WomenHeart to explore key questions from the 2011 10Q Report: Advancing Women’s Heart Health Through Improved Research, Diagnosis and Treatment.

WomenHeart Champions and staff at the Heart of Fitness tour in Atlanta.

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Wenger Awards

EACH YEAR, WomenHeart hosts the Wenger Awards to formally recognize individuals and organizations who have made extraordinary contributions to the advancement of women’s heart health. The Wenger Awards—named for Nanette Kass Wenger, MD, pioneer of the study of cardiovascular disease in women—is the only national event that honors outstanding individuals and organizations who have demonstrated a tireless commitment to improving the lives of women living with heart disease, and to advancing the science that will improve prevention, early and accurate diagnosis, and proper treatment.

2015

2010

2006

Public Policy: Janine Clayton, MD, National Institutes of Health Communications: Lesley Stahl, CBS News 60 Minutes Corporate Leadership: Edwards Lifesciences Advancing Research: All Women Medical Research Participants (accepted by WomenHeart Champions Katherine Leon, Joyce Fairman and Brandie Taylor)

Public Service: Kathleen Uhl, MD, Office of Generic Drugs in the Center for Drug Evaluation and Research at the Food & Drug Administration Corporate Leadership: sanofi-aventis US Healthcare: The Society for Cardiovascular Angiography and Interventions Distinguished Leadership: Nanette K. Wenger, MD, MACC, FAHA

2014

2009

Public Policy: The Honorable Rosa De Lauro Public Service: Thomas R. Frieden, MD, MPH, Centers for Disease Control and Prevention Visionary Award: Jackie Markham, Co-Founder, WomenHeart Corporate Leadership: Burlington Stores Medical Leadership: Mary Norine Walsh, MD, FACC, St. Vincent Heart Center

Advocacy: National Women’s Law Center Corporate Leadership: Novartis Pharmaceuticals Community Education: The WISEWOMAN Program of North Carolina Healthcare: Tracy L. Stevens, MD, FACC, Saint Luke’s Mid America Heart Institute’s Muriel I. Kauffman Women’s Heart Center Public Policy: The Honorable Lisa Murkowski

Advocacy: Larry King Cardiac Foundation Communications: Rhoda Baer Photography Community Education: Sue Ann Thompson, Wisconsin Women’s Health Foundation Corporate Leadership: 8th Continent Soymilk Healthcare: Karol Watson, MD, PhD, University of California, Los Angeles  Public Policy: Partnership for Prescription Assistance, Pharmaceutical Research and Manufacturers Association (PhRMA)

2013 Public Policy: The Honorable Debbie Stabenow Public Service: Carolyn Clancy, MD, Agency for Healthcare and Research Quality at the Department of Health and Human Services Corporate Leadership: Abbott Vascular Medical Leadership: Rita Redberg, MD, University of California, San Francisco 2012 Community Outreach: HeartScarves Craft Community Public Service: US Surgeon General Regina M. Benjamin, MD, MBA Corporate Leadership: Boston Scientific Medical Leadership: Alexandra Lansky, MD, Yale School of Medicine 2011 Public Service: Health and Human Services Secretary Kathleen Sebelius Corporate Leadership: Bayer HealthCare Medical Leadership: Lori Mosca, MD, MPH, PhD, Columbia University Medical Center and New YorkPresbyterian Hospital Community Outreach: Mayo Clinic

2008 Distinguished Leadership: Laura Bush Corporate Leadership: CheeriosTM Communications: Jane Chesnutt, Woman’s Day Magazine Community Education: WomenHeart Support Network Coordinators Healthcare: C. Noel Bairey Merz, MD, Cedars Sinai Medical Center Public Policy: The Honorable Lois Capps Public Service: Elizabeth G. Nabel, MD, National Heart, Lung and Blood Institute 2007 Advocacy: Kathy Kastan and the WomenHeart Board of Directors Communications: Tina Bradford, 2005 WomenHeart Champion and Mississippi Support Network Coordinator Community Education: Elena Alvarado, National Latina Health Network Corporate Leadership: Jill Dolgin, GlaxoSmithKline Healthcare: Dalene Bott-Kittslaar, Mayo Clinic, Women’s Heart Clinic Public Policy: Richard Keller, MD, Coroner for Lake County, Illinois

2005 Advocacy: Fern Mallis, 7th on Sixth  Community Education: Black Women’s Health Imperative  Communications: Howard Green, Guidant Corporation, and Virgie Harris-Bovelle Corporate Leadership: CIGNA Corporation  Healthcare: Pamela Marcovitz, MD, Ministrelli Women’s Heart Center  Public Policy: Barbara Alving, MD, National Heart, Lung & Blood Institute 2004   Advocacy: Roni Posner and CAMP Rehoboth  Communications: Glamour magazine  Community Education: Fujisawa Healthcare  Corporate Leadership: AstraZeneca Pharmaceuticals  Healthcare: Jennifer Mieres, MD, LIJ North Shore University Hospital  Public Policy: Hadassah 2003   Advocacy: The Honorable Julia Carson Communications: The Heart Truth®/ Red Dress Campaign, National Heart, Lung and Blood Institute and Ogilvy Public Relations Worldwide Community Education: Medtronic Foundation  Corporate Leadership: Nina M. Hill, PhD, Pfizer Inc. Healthcare: Dr. Susan K. Bennett, MD, Washington Hospital Center  Public Policy: American Legacy Foundation

2002 Advocacy: Shannon Hills, American Heart Association  Communications: Lifetime TV Community Education: Association of Women’s Health, Obstetric and Neonatal Nurses  Corporate Leadership: Guidant Corporation Healthcare: Sharonne Hayes, MD, Mayo Clinic Public Policy: Campaign for Tobacco Free Kids 2001   Advocacy: Nick Chiromeras of Medtronic, Inc.  Communications: Merck & Co. Community Education: YWCA of the USA  Corporate Leadership: Ruth Merkatz, PhD, Pfizer Women’s Health Healthcare: Kathy Berra, MSN, ANP, Stanford University’s Center for Research in Disease   Prevention Public Policy: Elizabeth Ofili, MD, MPH, Association of Black Cardiologists and Morehouse School of Medicine 2000   Advocacy: Phyllis Greenberger, Society for Women’s Health Research  Communications: Kathleen McAuliffe, MORE Magazine Community Education: Julia Scott, National Black Women’s Health Project  Corporate Leadership: Noreen Sullivan, DuPont Pharmaceuticals  Healthcare: Debra Judelson, MD, American Medical Women’s Association Public Policy: Alvina Bennett, National Coalition for Women Against Tobacco

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WomenHeart Programs WOMENHEART SCIENCE & LEADERSHIP SYMPOSIUM AT MAYO CLINIC

— Each year since 2002, this nationally renowned program has trained women heart disease survivors to become volunteer community educators, national spokespersons, patient advocates, and Support Network leaders for other women living with heart disease. Sixty women from around the country are selected annually to attend the Symposium at Mayo Clinic in Rochester, Minnesota. More than 700 women heart patients—WomenHeart Champions—have completed the program and gone on to educate and support thousands of women nationwide (nearly 50 percent are credited with saving a life).

WOMENHEART CHAMPIONS

— WomenHeart’s 700+ WomenHeart Champions are women heart disease survivors who have made the selfless commitment to become leaders in their communities and examples to the nation by educating, advocating, and supporting the 42 million American women living with or at risk for heart disease. WomenHeart Champions participate in community meetings, health fairs and other wellness events. They distribute heart health information developed by WomenHeart’s Scientific Advisory Council members, give presentations on women’s heart health, and tell their story to inspire other women to start taking charge of their heart health.

Nearly 50 percent of WomenHeart Champions are credited with saving a life. HeartScarves provides hand-knit red scarves to women heart patients.

NATIONAL HOSPITAL ALLIANCE

— WomenHeart founded the National Hospital Alliance in 2012 to create a unique partnership between WomenHeart and progressive hospitals throughout the country dedicated to advancing women’s heart health in their community. WomenHeart developed the National Hospital Alliance to ensure that women heart disease patients in every community have access to free information, education and patient support services.

WOMENHEART SUPPORT NETWORKS

— WomenHeart Support Networks are led by trained volunteer patient Support Network Coordinators in communities across the country. Each Support Network meets monthly and provides in-person peer support and education to women living with heart disease. WomenHeart recently expanded its Support Network program by launching the first virtual Support Network for women who cannot attend an in-person Support Network meeting.

WOMENHEART@WORK

— WomenHeart launched this workplace education program in 2012 to provide employees at workplaces across the country with information about heart disease and the importance of stress management for cardiovascular health. WomenHeart@Work presentations are given by WomenHeart Champions— women heart disease survivors trained by WomenHeart as community educators.

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HEARTSCARVES

— Founded by four women heart disease survivors in 2005, HeartScarves has touched the lives of thousands of women heart patients, thanks to WomenHeart’s national volunteer corps of WomenHeart Champions. Distributed in hospitals and at WomenHeart Support Network meetings throughout the country, each hand-made red scarf offers comfort, support, and encouragement for a woman with heart disease, and becomes part of her healing journey.

SISTERMATCH

— WomenHeart’s SisterMatch program is a peer-to-peer support opportunity for women living with heart disease. After being diagnosed, many women experience feelings of isolation and depression. Being able to talk to someone “who’s been there” can make a difference in emotional recovery. Through SisterMatch, women connect one-on-one with a trained WomenHeart Champion patient volunteer who can provide needed support over the phone, in person, or via email.

RED BAG OF COURAGE®

— WomenHeart’s Red Bag of Courage® is a tote bag filled with life-saving information and tools to help women take charge of their heart health. WomenHeart’s Red Bag of Courage® was developed to provide women with accurate information on various aspects of heart disease so they can make heart healthy decisions about diet, exercise, medical treatment and mental health. The Red Bag of Courage® is distributed through WomenHeart Champions, Support Networks, hospitals, physician offices and partner organizations.

“As a healthcare provider, I can sympathize, I can offer a shoulder to cry on, I can offer medication, I can offer therapy, but I can’t say I’ve been through it. And WomenHeart is able to tell women that ‘we know what it’s like. We have been through it.’” —Susan K. Bennett, MD, WomenHeart Scientific Advisory Council and The George Washington University Hospital Red Bag of Courage® helps women take charge of their heart health.

PARA LA MUJER HISPANA

— WomenHeart launched Para la Mujer Hispana in 2013 to reach Latinas—a population at increased risk for heart disease—with vital heart health information. Through this new initiative, WomenHeart has produced and distributed educational pamphlets, videos, and other information on women’s heart health in Spanish. It has also opened a telephone hotline with bilingual operators who can answer questions about heart health in Spanish and English, and created a Spanish language website on www.womenheart.org.

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WomenHeart National Hospital Alliance Launched in 2012, the WomenHeart National Hospital Alliance is a partnership between WomenHeart and progressive hospitals committed to advancing women’s heart health and gender specific cardiovascular care. These hospitals seek to ensure that women heart disease patients in every community have access to information, education and patient support services. NHA members make a difference in the lives of patients, families and their communities by accessing WomenHeart’s renowned educational materials and programs developed in conjunction with the nation’s medical leaders in women’s heart health— WomenHeart Scientific Advisory Council members—as well as to the training and technical assistance required to establish and maintain Support Networks for women heart patients. In 2014, WomenHeart created a capacity-building program to provide grants to hospitals that focus on meeting the heart health needs of underserved and high-risk women to allow them to join the NHA.

NATIONAL HOSPITAL ALLIANCE MEMBERS

Atlantic Health Systems, Morristown Medical Center, Morristown, New Jersey Aurora St. Luke’s Medical Center, Milwaukee, Wisconsin Bakersfield Heart Hospital, Bakersfield, California* Boca Raton Regional Hospital—Christine E. Lynn Women’s Health & Wellness Institute, Boca Raton, Florida Captain James A. Lovell Federal Health Care Center, Chicago, Illinois Charleston Area Medical Center, Charleston, West Virginia Chickasaw Nation Department of Health, Chickasaw Nation, Oklahoma Columbia Memorial Hospital, Astoria, Oregon Cone Health, Greensboro, North Carolina Duke University Medical Center, Durham, North Carolina El Camino Hospital, Mountain View, California Grady Memorial Hospital, Atlanta, Georgia Henry Ford Hospital, Detroit, Michigan The Hospital of Central Connecticut, New Britain, Connecticut* Maimonides Medical Center, Brooklyn, New York* MedStar Heart Institute, Washington, DC* Mercy Health West Hospital, Cincinnati, Ohio Miami Cardiac & Vascular, Miami, Florida* Montefiore Medical Center, Bronx, New York Muriel I. Kauffman Women’s Heart Center at St. Luke’s Mid America Heart Institute, Kansas City, Missouri* (First member) North Shore LIJ—Katz Institute for Women’s Health, Long Island, New York*

Norton Heart Care, Louisville, Kentucky Parkview Heart Institute, Fort Wayne, Indiana Providence Hospital, Columbia, South Carolina Scripps Cardiovascular Care, San Diego, California* St. Joseph’s/Candler, Savannah, Georgia St. Luke’s Sugar Land Hospital, Sugar Land, Texas Texas Heart Institute, Houston, Texas* Tucson Medical Center, Tucson, Arizona University of Illinois Hospital & Sciences System, Chicago, Illinois University of Kansas Hospital-Westwood Campus, Kansas City, Kansas* The University of Pennsylvania— Penn Medicine Center for Women’s

Cardiovascular Health, Philadelphia, Pennsylvania Virtua Health System, Marlton, New Jersey Winthrop-University Hospital, Mineola, New York Women’s & Children’s Hospital, Lafayette, Louisiana The Women’s Cardiovascular Health Center at the Ross Heart Hospital of The Ohio State University, Wexner Medical Center, Columbus, Ohio*

* Denotes Founding National Hospital Alliance Member

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Board of Directors & Scientific Advisory Council BOARD OF DIRECTORS

SCIENTIFIC ADVISORY COUNCIL

Kathy Webster, MA Chair, WomenHeart Champion and Support Network Coordinator

Karol Watson, MD, PhD, FACC Chair, WomenHeart Scientific Advisory Council; Professor of Medicine/Cardiology; Co-Director, UCLA Program in Preventive Cardiology; Director, UCLA Barbra Streisand Women’s Heart Health Program

Carrie M. Wosicki, MBA Immediate Past Chair, WomenHeart Champion Evan C. McCabe, RN, MN Vice Chair, WomenHeart Champion and Support Network Coordinator Velma Henderson, RN, MS, CNAA, BC Treasurer Claire D’Andrea, RN, CHTP, CCRC Secretary, WomenHeart Champion Alisa Becket WomenHeart Champion Paige Bingham, MBA Director of LifeCourse, Allina Health Debra Gee General Counsel and Executive Officer, Chickasaw Nation Division of Justice Martha Gulati, MD, MS, FACC, FAHA Associate Professor of Medicine, Division of Cardiology; Associate Professor of Clinical Public Health, Division of Epidemiology, The Ohio State University Wexner Medical Center

Theresa Beckie, PhD, RN, FAHA Professor, College of Medicine Cardiology and College of Nursing, University of South Florida Susan K. Bennett, MD, FACC Consulting Cardiologist, MedStar Cardiology Associates, LLC, MedStar Heart and Vascular Institute, MedStar Washington Hospital Center Kathy Berra, MSN, ANP, FAHA, FPCNA, FAAN Cardiovascular Nurse Practitioner, Cardiovascular Medicine and Coronary Interventions; Director, The LifeCare Company Nieca Goldberg, MD Director, NYU Women’s Heart Program; Clinical Associate Professor of Medicine, Joan H. Tisch Center for Women’s Health, NYU Langone Medical Center Phyllis Greenberger, MSW President & CEO, Society for Women’s Health Research

Richard Jacob Chairman/CEO, Prescott, Forbes & Associates

Martha Gulati, MD, MS, FACC, FAHA Associate Professor of Medicine, Division of Cardiology; Associate Professor of Clinical Public Health, Division of Epidemiology, The Ohio State University Wexner Medical Center

Elizabeth “Jackie” Noyes, MA, FAAP Former Executive Associate Director, American Academy of Pediatrics

Sharonne Hayes, MD, FACC, FAHA Professor, Cardiovascular Diseases; Founder, Women’s Heart Clinic, Mayo Clinic

Barbara Tombros Principal, Merall Consulting, Inc.

Eileen Hsich, MD Associate Director, Heart Transplant Center, Cleveland Clinic

Virginia Hallner, CPA Accounting Consultant, Hallner Consulting

Donna Winburn WomenHeart Champion EMERITUS Marty Allen, MBA, MSW Carol Allred, Past Chair Kathy Kastan, LCSW/MAE Past Chair Nancy Loving, Co-founder Jackie Markham, Co-founder Judy Mingram, Co-founder

Penny M. Kris-Etherton, PhD, RD, FAHA Distinguished Professor of Nutrition, Department of Nutritional Sciences, Pennsylvania State University Alexandra Lansky, MD Professor of Medicine, Section of Cardiovascular Medicine; Director, Heart and Vascular Clinical Research Program, Yale University School of Medicine; Honorary Reader, University College of London Pamela Marcovitz, MD, FACC Medical Director, Ministrelli Women’s Heart Center; Associate Professor, Oakland University Beaumont Medical School, Beaumont Health System Jean M. Nappi, BS, PharmD, FCCP, BCPS Professor of Clinical Pharmacy & Outcome Sciences, Medical University of South Carolina

Stacey E. Rosen, MD, FACC, FACP, FAHA Associate Professor, Hofstra North Shore-LIJ School of Medicine; VP of Women’s Health, The Katz Institute for Women’s Health, North ShoreLIJ Health System Thoralf M. Sundt III, MD Chief of Cardiac Surgery, Massachusetts General Hospital Amparo Villablanca, MD Frances Lazda Endowed Chair in Women’s Cardiovascular Medicine; Professor of Cardiovascular Medicine; Director, Women’s Cardiovascular Medicine, University of California, Davis Annabelle Santos Volgman, MD, FACC, FAHA McMullan-Eybel Chair for Excellence in Clinical Cardiology; Professor of Medicine, Rush College of Medicine; Medical Director, Rush Heart Center for Women, Rush University Medical Center Mary Norine Walsh, MD, FACC Medical Director, Heart Failure and Cardiac Transplantation Programs, St. Vincent Heart Center of Indiana Nanette Kass Wenger, MD, MACC, MACP, FAHA Professor of Medicine (Cardiology) Emeritus, Emory University School of Medicine; Consultant, Emory Heart and Vascular Center Susan Wood, PhD Associate Professor, School of Public Health & Health Services, The George Washington University EMERITUS C. Noel Bairey Merz, MD, FACC, FAHA Professor of Medicine; Director, Barbra Streisand Women’s Heart Center; Director, Preventive and Rehabilitative Cardiac Center, Cedars-Sinai Heart Institute Jennifer H. Mieres, MD, FACC, FAHA, FASNC Professor of Cardiology & Population Health, Hofstra North Shore-LIJ School of Medicine; Chief Diversity and Inclusion Officer; SVP, Office of Community & Public Health, North Shore-LIJ Health System Rita Redberg, MD, MSc, FACC Professor of Medicine; Director of Women’s Cardiovascular Services, Division of Cardiology, University of California, San Francisco Tracy L. Stevens, MD, FACC Professor of Medicine, University of MissouriKansas City School of Medicine; Medical Director, Muriel I. Kauffman Women’s Heart Center, Saint Luke’s Mid America Heart Institute

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Donors & Financials 2014 GOVERNING BOARD Carrie M. Wosicki, MBA, Chair Denise Delahanty, MBA, Vice Chair Kathy Webster, MA Ed, Treasurer Claire D’Andrea, Secretary Alisa Becket Jane Chesnutt Ann DeVelasco, RN Martha Gulati, MD Virginia Hallner Velma Henderson, RN, MS Evan McCabe, RN, MN Elizabeth Noyes, MA, FAAP

2014 CORPORATE ADVISORY COMMITTEE Amgen AstraZeneca Pharmaceuticals LP Boehringer-Ingelheim Pharmaceuticals Bristol-Myers Squibb Eli Lilly & Company GlaxoSmithKline Novartis Pharmaceuticals sanofi-aventis US St. Jude Medical, Inc. Takeda Pharmaceuticals

NATIONAL HOSPITAL ALLIANCE MEMBERS Atlantic Health Systems, Morristown Medical Center Bakersfield Heart Hospital Boca Raton Regional Hospital Columbia Memorial Hospital Cone Health Maimonides Medical Center Miami Cardiac & Vascular Institute Muriel I. Kauffman Women’s Heart Center North Shore LIJ-Katz Institute for Women’s Health Norton Heart Care Parkview Heart Institute Providence Hospital Scripps Cardiovascular Care Texas Heart Institute The Hospital of Central Connecticut University of Kansas Hospital–Westwood Campus Virtua Health System

2014 WENGER AWARDS SUPPORTERS Corporate Hosts Gilead Sciences Heart Partner AstraZeneca Pharmaceuticals Pfizer, Inc. Heart Healer Boston Scientific Heart Sister Bayer HealthCare/ USA Burlington Stores QVC Heart Friend American College of Cardiology Anonymous BoehringerIngelheim Genentech Jim Simms Morgan, Lewis & Bockius LLP Rochester Marriott, Minnesota

FUTURE FUND Alisa Becket Jane Chesnutt Kathy Webster Sharonne N. Hayes, MD

15TH ANNIVERSARY DONORS Angelo and Patricia Agreda Scott Allred Richard, Lily and Micaela Alpert Virginia Balch Julie Barlie Robert Benish

Sue Bennett, MD Susan Bennett Janet Bliden Karen Bork Rayette Brown Susan Brown Valerie Brown Alyssa Browning Jane Chesnutt Marcine Chmielewski Rochelle Claypoole Lisa Clough Star Colwell Marla Cowan Dennis Cryer Abigail Cuffey Claire D’Andrea Josefina Dauval Tom Davoren Denise Delahanty Dayle Deresh Annie DeVelasco Julie Dickens Jeffrey Dobeinsky Lois Douthitt Arlene Drucker Charles Duffy Irene Duffy Andrea Duskas Karen Fanning Pamela Federline Rebecca Ferrante Roslyn Feuer Rhoda Fish Terrie Fishman Barbara Ford Sharon Frankel Lynn Frasier Karin Gluth Gaynell Gray Martha Gulati, MD Virginia Hallner Margrit Hammar Teresa Harris Ellen Hart Sharonne Hayes, MD Chris Heidenfelder Taren Hendricks Dara Herring Dorothy Hitchmoth Ronaele Hoffman Beverly John

Arthur Kainz Kathryn Kastan Elizabeth Kegler Leah Kegler Angela King Jody Knack Sergey Kotelnikov Terri Lamb Carolyn Y. Lawton Amanda and David Lebowitz James Lee Nancy Lee Claire Liang, MD PA Barry Liden Toni Lipe Vicky Lynne Judy Manus Pamela Marcovitz Tammy Marks Jill Martinez Christopher Mastriano Joey Mazzera Evan Mcabe Steven Mcabe Susana Mendoza Jennifer Mieres, MD Shari Michaels Paula Mickelson Jennifer Mieres Carol Morrissey Linda Nease Carol Noller Elizabeth Noyes Lisa Olson Sharon Parker Cathy Perise Diane Phillips William Pollert Dr. Roni Posner James Pruss Susan Quinn Nanci Rinehart Kathleen Rohac Alex Ruffin Alexis Ruffin Christina Rule Grace Schoenberger Diane Schoenherr Melissa Schooley Emily Sharpe H. Thomas Sharpe Karla Shockley

McCarthy Nathan Shue Michele Silverman Michael Simcock Lisa Sisterhenm Carol Spence Sandra Staples Mary Steele Leslea SteffelDennis Fern Stone Theresa Stratta Heather Swales Kathleen Sykes Joyce Taber Natalie Thibault Bev Thompson Ed and Leslie Tory Kathleen Tucker Lois Marie Von Funk Lynne Wade Marie Warshauer Kathryn Webster Nanette Wenger, MD Lynette White Andre Williams Donna Winburn Mary Witt Carrie Wosicki Kellie Wostrel Sarah Wrike

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2012

— SPONSOR THANK-YOU: BURLINGTON STORES In 2012, national off-price retailer Burlington Stores became WomenHeart’s first $1 million partner, with funds generated from Burlington’s first-ever Red Dress event hosted in support of women’s heart health. Shoppers purchased a red dress paper icon for $1 or more with proceeds benefitting WomenHeart. Since then, Burlington has presented WomenHeart with more than $1 million in Red Dress event donations each year. Burlington has also partnered with WomenHeart to launch Para La Mujer Hispana, a national public health education program to educate Latinas about heart health. Nearly 70 percent of Latinas

have a least one risk factor for heart disease, and this comprehensive campaign empowers these high risk women to take charge of their heart health. In nearly 50 Burlington store events since 2014, WomenHeart has conducted heart health screening events and distributed millions of bi-lingual heart health educational materials through WomenHeart Champion patient volunteers and Burlington associates. Through the Heart of Style (2014) and Heart of Fitness (2015) tour events nationwide, WomenHeart and Burlington made it possible for women to learn how to live heart healthy, exercise, and eat right. The two campaigns have generated more than 350 million media impressions.

REVENUE

Grants $1,229,353 Partnerships 298,517 CAC Dues 280,000 NHA Dues 255,000 Sponsorships 415,978 Individual 1,227,314 Miscellaneous 44,649 In-Kind 86,184 TOTAL

$3,839,009

EXPENSES

32% 8% 7% 7% 11% 32% 1% 2%

Volunteer/Patient Support $445,858 and Technical Assistance Public Outreach and Awareness 1,264,265 Educational Meetings 835,019 Management and General 1,231,351 Fundraising 241,115 Total

11% 31% 21% 31% 6%

$4,017,608

*Revenue figures based on FY14 audited financial statements prepared by CliftonLarsonAllen.

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Ways To Support WomenHeart: The National Coalition for Women with Heart Disease changes and saves women’s lives every day. Your support helps WomenHeart empower women to take charge of their heart health. Your donation helps WomenHeart reach even more women with education and support, and your contribution may be tax-deductible. To discuss your giving options, or if you have questions, please contact Mary McGowan, Chief Executive Officer, WomenHeart at 202-464-8735.

Make an Online Donation

Sponsor a Future WomenHeart Champion

Donating online is quick, easy, and safe. Visit www.womenheart.org for more information.

If you prefer to donate by check, please make your check payable to “WomenHeart” and mail your check to WomenHeart, Dept. #4001, Washington, DC 20042-4001

If you choose, you can designate your contribution to support the training of a future WomenHeart Champion at WomenHeart’s annual Science & Leadership Symposium. Your donation of $25 or more will be contributed to WomenHeart’s scholarship fund for women volunteers who need help with expenses associated with travel to the Symposium.

Participate in Your Workplace Giving Campaign

Provide Monthly Support

Many workplaces offer their employees the opportunity of donating directly from their paycheck to the charities of their choice.

Monthly donors provide WomenHeart with a steady stream of income to meet program administration expenses. With this option, you can choose to make your monthly contribution by credit card or with regular electronic withdrawals from your checking account of choice.

Mail a Check to WomenHeart

• If you give through the Combined Federal Campaign (CFC), designate WomenHeart as your recipient. Our CFC number is 15217. • If you give through United Way, designate WomenHeart as your recipient. • If your workplace has a similar campaign, please designate WomenHeart as the recipient of your workplace giving contributions. Participate in a Matching Gifts Program Your gift could have double the impact with a matching gift from your employer. Some companies match employee contributions dollar for dollar. Some employers extend these benefits to retirees and spouse of employees, as well.

Leave a Legacy with Planned Giving With a planned gift to WomenHeart, you can leave a lasting legacy that helps empower women to take charge of their heart health. Planned gifts are made by designating WomenHeart as a beneficiary of a will, retirement account, life insurance policy, or trust. Give While You Shop Visit AmazonSmile.com and select WomenHeart: The National Coalition for Women with Heart Disease as your charity of choice. The Amazon Smile Foundation will donate 0.5% of the purchase price of your products that are eligible for AmazonSmile donations to WomenHeart.

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“My cardiologist saved my heart, but WomenHeart saved my life.” —Anonymous, WomenHeart Champion 003_WASH1115_lr 3

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1100 17th Street, NW, Suite 500 Washington, DC 20036 202-728-7199 www.womenheart.org

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Profile for Washingtonian Custom Media

WomenHeart 2014 Annual Report  

WomenHeart 2014 Annual Report