TSCommunity
TSCommunity
Who could possibly forget the wonderful events of 19 May 2018? No, we’re not talking about the marriage of Meghan Markle and Prince Harry (amazing though that was), but the TSA’s Outlook Event in Manchester.
Outlook report
Forty adults with TSC met in Chancellors Hotel, Fallowfields, and enjoyed a day-long programme which included sessions on using technology, a clinical update from Dr Chris Kingswood and a laughter yoga workshop. Also Janet Bower, one of the first ever members of staff at the TSA and long time supporter of Outlook, was presented with an award to recognise her hard work and commitment.
k and c a b d e e f resting e t n i e m o f the day s o d s e e r c a n h e i s r pe ple Some peo n their lives and ex so comment
Lots of people with TSC enjoyed meeting each other at the TSA’s Outlook Event
“I thought the event was excellent. This year the events were a lot more interactive and focused for people with TSC as adults (Outlookers). The staff were very welcoming and clearly worked very hard to make it a great day. Thank you.” Clare
“This is my family” Clare Kassa, the TSA’s Head of Information and Support Services , who led this year’s event, said: “The day was fantastic and the energy in the room was pretty inspiring. It was brilliant to see people catching up with old friends, as well as new people being warmly welcomed into the group. As someone new to the TSA, it was very powerful for me to hear first-hand, people’s experiences and witness the importance of peer to peer support. The turnout was amazing, and our Chair, Martin Short, says that he cannot remember so many people at an Outlook event before. I think we all agree that the most memorable session of the day was the Laughter Workshop – such fun and everyone entered into it wholeheartedly.”
Janet
You can meet other people affected by TSC at the TSA’s BIG DAY event in November
“Getting a really good consultant and support through this group means you’re almost there” “The range of symptoms makes me feel like I’m playing TSC Bingo”
“I enjoyed meeting with friends I hadn’t seen for many years, it was like we had never been apart. I can be me when I’m at TS Events, where in the “real world” I have to edit myself a lot.”
“Everolimus has changed my life – it has really helped reduce my anxiety too”
“Coming to the Outlook group is the only place in the world where I am able to ‘me’”
“I have TS and I’d like to thank the TSA for doing the research that helped me when I had my two children” “I feel refreshed and re-energised and armed with new information to take away and use.”
If you are an adult with TSC and looking for support, please call 0207 7922 7731 or email outlook@tuberous-sclerosis.org 22 Summer 2018
TSA SCAN 23